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Jan 27, 2017
Charlotte, Dean and Lilly 💞💚💞
Welcome to our CaringBridge site which Mayo led us to. Thank you for sharing our journey down the stumbling road of MS, Cancer and more issues that so often take us off course from our original plans and dreams. My immune system tries to fight the MS Monster, but mostly loses, and I end up hospitalized with some condition taking forever to recover from. Battling different kinds of Cancers leaching onto the MS journey takes us on a roller coaster ride too often! Amazing Journey!!!
LOVE is my page title because LOVE truly HEALS. I am at my best when surrounded by loving family and especially our five granddaughters. 💞Also, so much LOVE has been shared on our journey.
PINK color just fit for the cancers fought along this curvy road. Melanoma, Thyroid, Adrenal Gland Pheo-chromocytosis followed by hospital obtained Super Bug. The Bug added two extra hospital stays locally and one week at MAYO. Several infectious disease docs were brought in, and I have been told by three docs that they did not think I would make it. I have a GREAT BIG GOD and so many prayer warriors that we are not surprised I kicked it after TWO and A HALF YEARS. Most of that time was spent in isolation which totally compromised our social life and travels. LOVING prayer warriors have pulled me through so much, & I pray they follow me. I pray for them as well.
We walk and roll a winding path of MS, a debilitating disease with no cure, and cancers, tumors and extremely compromised immune system. I say we because this journey changed the way of life for my supportive, loving husband Dean too. We both fight it.
Everyone knows of Cancer; however, I recommend anyone close to me research MS because it is crazy! Join an MS Support Group on-line and learn from REAL PATIENTS, not those paid by pharmaceutical companies. REALLY. They portray their medicine placing one back on the slopes or climbing mountains Haha...
In fall of 2015, questions of abnormal MRI stalked us while sending us to Piedmont Brain Tumor Center. By early 2016, the brain tumor diagnosis joined our varied medical issues. The physicians there are remarkable and have been treating me for the tumor. So far, it has not grown which is great. We are praying for this to continue because of the precarious portion of the brain where it calls home!
Also, another adrenal tumor was found, on a routine MRI, in remaining adrenal gland which is being monitored for being another Pheochromocytoma!! We pray it is not, for I don't want to lose that one and be required to take steroids the rest of my life!!
The MonSter has made it difficult for me to walk very far at times. Since brain tumor treatment, my legs are not as weak, and I have been blessed with walking some distances again. My MS doc chuckles when I share my theory of the nuclear medication healing MS!!
We do have some busy times ahead of us, and I always cherish everyone's prayers for us. I will try to journal more about how I am doing. I have been bad the last two years with difficult matters to address, and quite frankly, I did not feel like writing about what was going on. I have worked my way through, for the most part. We are moving forward holding GOD's HUGE HAND and communicating with JESUS all day long.
Dean and I are truly enjoying his retirement, and I look forward to getting back into my church functions with such wonderful people.
For now, maybe we will see you on the road while in Winnie (Retirement Small RV Winnebago). For this is how we roll !!
Our life is a journey over hills and into valleys with rocks and detours along the way. We are blessed with some true jems among those rocks. Dean and I thank you abundantly for your support, compassion and prayers.