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Apr 10, 2018 Latest post:
May 31, 2018
In early May 2018, we (Charlie and Kara) traveled to Cologne, Germany where Charlie received an aortic valve specifically designed to correct severe aortic insufficiency like his without open heart surgery. This valve, made by JenaValve, is the only one that would work for Charlie's set of conditions. The implantation was perfect, and Charlie is already more energetic than when we left for Germany. He is building strength for the next, even bigger step: a liver transplant necessitated by autoimmune disease. We know that many people do not receive livers in time, but if the stars align for us again, Charlie will feel better than he has in many years and he could have a normal lifespan. We are hopeful that he will be placed on the official liver waiting list within a month.