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Aug 21, 2014 Latest post:
Nov 17, 2016
Daddy was diagnosed with Parkinson's Disease in May 2012 but can acknowledge now that he was experiencing symptoms for many years - and just figured it was "aging." Chances are that his bicycling and all his physical activity "pushed back" on the PD progression. In February of this year (2014) the diagnosis was revised to PSP (Progressive Supranuclear Palsy) - a more aggressive "parkinsonism."
Daddy has always been a disciplined person and those habits have been a godsend in his therapy. While walking is becoming quite a challenge he still makes it to the gym to ride a "recumbent" exerciser. And, even though daily hygiene tasks are tedious he is diligent - and just as dapper as ever.
Daddy is a master at assessing, understanding and acting on information. While his symptoms really aren't "surmountable" his ability to understand and work with reality has given him a seemingly unwarranted acceptance. It would be easy to complain or apologize. Daddy does neither. He just keeps on keeping on!
Along with Daddy, Mom is embracing the challenges of her new role as care-giver and care-coordinator. There have been big changes to their lifestyle but she tries to maintain an exercise schedule and a household that is orderly and well-managed, her hallmark.
One of Mom and Dad's travel dreams was to take the family to Provence and stay in a "villa" - and we were all able to make that trip a few weeks ago. The opening photo was taken at a family dinner with everyone there together. We are all grateful for the chance to gather in such a magical setting. Many memories were made and the time spent together was priceless.As the challenges of living with PSP continue, we welcome your thoughts, memories, advice, or anything else you would like to share. We appreciate your support and words of encouragement during this time when it matters most.