Carter Castleberry Carter Castleberry

First post: Sep 19, 2018 Latest post: Jun 22, 2019
carter was born on September 7th he was beautiful in every way. In October of 2014 we started noticing signs of development delays. As time went on we started to noticed that he was not sitting up,smiling, or cooing, so we called early interventions who sent us on our way to the start of our long journey. Carter was diagnosed at 10 months with a genetic condition 5q22.2 dupication which he was the fourth in the world to be affected by this condition. We started to notice other medical conditions that would arise. Such as sleep apnea, rls, muscle weakness, large adult size head, developmental regression, a year later on July 1st of 2016 we had our first experience with what would be another diagnosis but this diagnosis would leave us with more medicines and more visits. I feel it is the scariest of all seizure disorder. Carter takes keepra and has dialstat (emergency life saving medicine)  we are slowing but surly make progress with lots of therapy physical is 2x a week speech is 7x a month and OT 1x a week and developmental 2x a month. This is just alittle bit of Carter's journey we just finished a more gene testing which those results with come in October of 2017. 

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