Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Alex has been fighting this lung disease for over a year. He was misdiagnosed and is now on the road to find out what lung disease he may have. His case is currently being reviewed on a daily basis by the Northwestern Lung Transplant team . This doesn't mean he will be having a lung transplant anytime soon. We are currently waiting on a blood panel to come back so a diagnose can be done. So far they are thinking along the lines of autoimmune lung disease. I will keep an update on this website. Thank you
update: Alex has been diagnosed with ILD as known as Interstitial Lung Disease which leads into Pulmonary fibrosis.