Nov 28, 2018 Latest post:
Nov 29, 2019
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
How did we get here? Alex had a seizure in May and a second in July of this year. Since those seizures the use of his right hand has been diminishing. The conclusion of the first seizure and MRI was that he had a migrational abnormality and did not require surgery. After a second MRI in October we were informed that Alex had a brain tumor. He followed that up with a biopsy that showed he has cancer, a glioma. Throughout this time we had been working with a team at CHOP in Philadelphia and now that Alex has turned 18 we moved over to University of Pennsylvania. Alex's surgery is set for, November 29.
Update Surgery on November 29 went well. Today, December 13, we met with Alex's Oncologist team at Penn. We received new information about the tumor removed in surgery. The pathology shows that it is not a glioma or a glioblastoma. It is a rare type of tumor, a pediatric high-grade diffuse astrocytoma. The methylation result of the tumor is a low positive and there could be a favorable response to chemotherapy.