Nov 18, 2017 Latest post:
Jul 12, 2019
AMAZING AGE. That is the name his aunt has given him.
August 2017 Age was urinating blood, and after multiple visits to his pediatric urologist and local pediatrician, he was seen by a nephrologist. She ordered an ultrasound where they discovered an 8 cm tumor on his left kidney on October 27, 2017. A CT scan confirmed the ultrasound, and Age underwent surgery to remove the mass and kidney. Pediatric oncology diagnosed him with Wilm's Tumor.
Because there was spillage during the surgery, the tumor was classified as stage 3. Age went through radiation and chemotherapy through St. Jude's in Peoria, IL.
Further genetic testing identified Age with a secondary condition called Denys-Drash Syndrome on November 30, 2017, where he will eventually have end stage renal failure by the age of 5 and potential cancer development on the remaining kidney.
Age began dialysis on January 23, 2018, much sooner than the nephrologist had hoped for.
In October 2018, Age underwent a nephrectomy to remove the other kidney at Boston Children’s Hosptial.
Since then he has been battling hypertension and as a result, his heart’s function has been compromised.
God has been with us every step of the way. We put our faith and trust in Him to give us strength when we have none left to give. We want Age's life to be a testimony for all to see the power of God moving. In the midst of this storm, we give Him praise.