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I dont know if you still check this page or not. My son was diagnosed with the same thing as yours and I would love to chat with you. I know NOBODY else that has this. I have lots of questions that I cant get answers for. My son's doctor says that they dont know much about CCSK. My name is Stephanie my email is mommysharp08@yahoo.com
Stephanie Sharp <mommysharp08@yahoo.com>
Alabaster, AL US - Friday, August 17, 2012 11:37 PM CDT
Happy weekend! Wanted to stop by and say "hi" and welcome you to Team Unite. Every team is important and we thank you for reaching out to be a voice for the children. Your little guy is precious. I hope you enjoyed your holiday.....sending peace and comfort!!
Thank you for spreading the word!
www.caringbridge.org/visit/henrytucker
www.teamunite.net
Many Families .....One Cause
michelle <tucker@tctc.com>
- Friday, November 28, 2008 4:13 PM CST
Good morning, Team Tayyib!
I wanted to stop by and welcome you to Team Unite and thank you for joining. I know that you'll be a valued addition!!
I lost my daughter Jessica June 9, 2007 (3 days after her 17th birthday) after a year-long battle with brain cancer. She is, and always will be, my hero and my inspiration. These kids deserve more, and I know that with so many families joining the cause, we will be heard.
Your entire family will remain in my thoughts and prayers.
THANK YOU FOR BEING A PART OF TEAM UNITE AND CONTINUING TO HELP SPREAD THE WORD!!!!!
Heide
Marshall, VA USA - Sunday, November 23, 2008 7:13 AM CST
Hi, I found your web site as I was looking for information on CCSK. My grandson was diagnosed in January 2005 when he was 18 months old. They removed a 1.1 kilo tumor and the kidney and then he had chemo treatment for 9 months. He went into remission for one year but then cancer was found in a bone in his leg. He has had chemo since last November and tomorrow will go into hospital for extra doses followed by one massive dose of a different drug. This will be followed by radiotherapy on the leg which will require anesthetic each day for a week as he is still only 3 years old and unable to keep still for the treatment. This is, as you know, all very scary but I was so pleased to see that your son is still in remission and shows me that we should still have hope. My grandson's name is Christian. Thank you for your web site my love to you and your family.
June Arthur <june@thearthurs.co.uk>
Wimborne, Dorset UK - Tuesday, April 24, 2007 5:46 PM CDT
Praying that Tayyib is having a wonderful weekend and that he has clear scans in February.
Jennifer a from the prayer bears and ones who care <sassy_girl913@yahoo.com>
Carrolton, Texas - Saturday, October 21, 2006 12:02 AM CDT
Hi Tayyib. We found your page from Andy Beck's page. My little girl had CCSK and she is doing great just like you are! We are so glad you are healthy again! We'll be back to visit and say hello. If you would like to visit us, we are at www.caringbridge.org/tx/peytonwhite
Marni White <martles71@aol.com>
Midlothian, TX - Monday, May 1, 2006 3:30 PM CDT
Wohoo!! Just read the great news! So happy to hear that things continue to go so well and here's to another perfect checkup in August! Looking forward to seeing you very soon at St. Baldrick's Day to celebrate!
Love,
Michelle, Dave, Hannah and ~Ben's Page~
Michelle Lansing <lansings@wctc.net>
Almond, WI USA - Friday, February 24, 2006 11:50 PM CST
Just surfing the Web and found your sons site. My son, Grant is 1 y.o. and diagnosed in Sept 2005. I loved hearing the positive results and that another mother is as anxious about long periods between scans. We would love to talk to you more. Feel free to contact us at any time!
Stefani and Pete Haar <stefani_haar@hotmail.com>
Onalaska, WI USA - Sunday, February 12, 2006 6:13 PM CST
Great news!! I know what you mean about letting go for six months - it's bittersweet. Looking forward to hearing about a cancer free almost-4-year-old Tayyib in Feb!
Love,
The Lansings ~Ben's Page~
Michelle Lansing <lansings@wctc.net>
Almond, WI USA - Wednesday, August 31, 2005 8:51 PM CDT
tayyib and family,
what a beautiful name and handsome young man....congrats on the one year cancer free that is fantastic news...i have heard about the event in stevens point and now am inspired to come...i'm not quite sure if i can make it but i think i may try--stevens point is one hour from me...
here is a candle in honor of you being cancer free and cheers to more years of cancer freeeeeeeee....sincerely, chris
~Chris's Page~ ( Wisconsin Angels/WI Friends of Allie) <clownfish_53@yahoo.com>
Appleton, WI - Thursday, March 17, 2005 10:41 PM CST
What fabulous news - and I love the name of your Doctor! :)
Don't you think this summer would be a good time for a family road-trip to see the sights of Wisconsin? At least to Pepin to see the eagles fly (and lunch with all of us?)
Congrats on the remission - prayers for all!
Mary McManus <mcmanusm@uwstout.edu>
- Thursday, March 18, 2004 2:23 PM CST
This is a very cool site!
Good lookin' family!
Jerry Lineberger <jlineber@uwsp.edu>
Stevens Point, WI USA - Tuesday, March 16, 2004 8:05 AM CST
Wonderful news for you all! We have kept you in our thoughts and prayers and are so pleased to hear that things are going well. It is said that of Faith, Hope and Love, the greatest is indeed Love, and we are sure that the love that surrounds you all has played a role here. Best wishes for continued success and a long, healthy life.
Paul Shrode <Paul.E.Shrode@lawrence.edu>
Appleton, WI USA - Tuesday, March 9, 2004 9:14 AM CST
A round of applause for Tayyib!! I'm so happy your therapy has come to an end and you are well. You have been so brave and, throughout, I've witnessed many smiles. I must say you are so very charming and I bet the nurses were at your beck and call. Again, YOORAH! Love and happiness to you and your wonderful family.
Shirley Gerzmehle <sgerzmeh@uwsp.edu>
Plover, WI USA - Tuesday, March 9, 2004 8:42 AM CST
Tayyib, you have strong parents & family network. :)You may not know me, but I know your mother. She supported me while I was at UWSP, though my treatment & I will forever be grateful to her.
Each day will be a new battle, but it will be a battle forward. You will aspire to each spring and look back to count the years that have gone by.
Best wishes to you and your entire family!
Rachel Wussow <rachel.wussow@ttu.edu>
Lubbock, TX USA - Friday, March 5, 2004 3:54 PM CST
Hey, little buddy. We rejoice at the good news about your remission. If the old saying, "That which does not kill us makes us strong" is true, then you are going to be a very strong man. You have been unlucky in terms of your health, but you sure are lucky to have such a great family.
John Jury <jjury@uwsp.edu>
Stevens Point, WI USA - Friday, March 5, 2004 3:01 PM CST
Ahmet abi, ailenize yeni katilan sevgili yegenimin icinde oldugu toplu resminizi gordum. Temennim bu guzel ailenin tumunun saglik ve mutlulukta olmasi. Tayyib'ime acil sifa dilerim. Laura yengeme sevgiler.
Cok selamlar
Ismail Ciftci <i_ciftci@yahoo.com>
Elazig, Turkey - Wednesday, January 14, 2004 7:33 AM CST
I was excited to see the picture with the baby in it! Hadn't heard an update for awhile, so thought I'd check in. Glad to hear things are going well!
Kris Swanson <swanson@stolaf.edu>
Northfield,, MN USA - Monday, January 12, 2004 3:54 PM CST
Laura and Ahmet,
Congratulations I'm glad to hear that both boys are doing fine. We miss you at Home Town and hope to see you again soon!
Tricia <taust727@uwsp.edu>
Stevens Point, WI - Wednesday, December 17, 2003 12:33 AM CST
Hi, Laura and all.
I'm glad to hear everything is going well. How is Tayyib liking his little brother now? I want to stop over to see you all sometime in the next week or so, so you'll have to let me know when is the best time.
You're all in my thoughts!
Jules <jzsido@uwsp.edu>
Stevens Point, WI 54481 - Tuesday, December 9, 2003 9:44 AM CST
Thanks for keeping us updated on Tayyib's progress. It sounds busy for you over the next 11 days. Please call us and tell us what you named Tayyib's baby brother so we can celebrate with you. We look forward to possibly having two Ciftci's at the center after the first of the year. We miss you so much. Please give Tayyib a big hug and kiss for us! Happy Thanksgiving. Love, Melanie and the Hometown Staff
Melanie Schmitz <hometown@wctc.net>
Stevens Point, WI USA - Wednesday, November 19, 2003 10:45 AM CST
What a beautiful little man Tayyib is! Tayyib and your family are in my thoughts often. Lots of happy healing thoughts coming your way! =0)
Robin (robli on FT) <hallx4@earthlink.net>
CA - Tuesday, November 18, 2003 1:54 AM CST
Happy Ramadan, Ciftci's. I have been keeping up with the medical progress through others and now your site. You are in my thoughts almost daily.
John Jury <djjury2003@yahoo.com>
Sydney, NSW Australia - Monday, October 27, 2003 10:20 PM CST
Sending well wishes to Tayyib! My son Logan is fighting a battle against rhabdomyosarcoma and so I know all that you're going through and am here if you need to talk. Good luck with all future treatments!
Tiffany (tkorte from FT) and Logan <ourdeerelogan@yahoo.com>
IL - Monday, October 27, 2003 10:21 AM CST
Tayyib and your family are in my prayers. Please stay strong (easy for me to say) for you beautiful son.
Karen (Sweedie) <sweedie92@sbcglobal.net>
Barrington, IL 60010 - Thursday, October 23, 2003 8:59 PM CDT
Laura,
Thanks for keeping us updated on Tayyib's condition. i copied the last several journal entries and posted them for the teachers at Hometown to see. You are constantly in our prayers. Love, Melanie and staff at hometown
Melanie <hometown@wctc.net>
Stevens Point, WI USA - Monday, October 20, 2003 3:20 PM CDT
Great webpage...I hope all goes well wth Tayyib:) He and his family are in my thoughts and prayers as well as Drew's.
Chris Holly <choll548@uwsp.edu>
Stevens Point, WI USA - Sunday, October 19, 2003 2:29 AM CDT
Chandler and Amara hope Tayyib is doing well. Our thoughts are with you.
Tim, Becky, Chandler & Amara Benn (Hometown Kids) <tbenn@charter.net>
- Tuesday, October 14, 2003 7:57 PM CDT
Hope the little Packer fan is feeling good today. I have you all in my thoughts each day.
Kris Swanson <swanson@stolaf.edu>
Northfield, MN USA - Tuesday, October 7, 2003 4:36 PM CDT
Our thoughts and prayers are with you. Let us know if it is OK to come over to visit sometime... even if you are Packer fans. :)Love
Eilene and Dave Peters
- Monday, October 6, 2003 6:22 PM CDT
Laurel and Family- Sure looks like things are going well. Please know that you guys are in our hearts and prayers. Prayers do work wonders, we have babies that were sent from Heaven!
Caren Handsaker (Carebear from FT) <carebear04@aol.com>
Wichita, KS USA - Saturday, October 4, 2003 10:38 PM CDT
HI...I am Kristin's Mother..keeping your family in my prayers and thoughts!
Phyllis Olson <plquig@yahoo.com>
Cornell, WI USA - Friday, October 3, 2003 8:55 AM CDT
I think about Tayyib everyday. I look at the ring and ornament all the time. He has turned into a beautiful young man. love and miss him lots!!
Eric and Kristin (Quigley) Volrath <quigley57@hotmail.com>
Chippewa Falls, WI USA - Thursday, October 2, 2003 6:49 PM CDT
I think about Tayyib everyday. I look at the ring and ornament all the time. He has turned into a beautiful young man. love and miss him lots!!
Eric and Kristin (Quigley) Volrath <quigley57@hotmail.com>
Chippewa Falls, WI Chippewa - Thursday, October 2, 2003 6:48 PM CDT
I think about that beautiful baby every day, and pray that all is going well. I wear the bracelet and ring that he gave me constantly. Love and prayers to you all!
Casey Allison <alliecat019@yahoo.com>
Stevens Point, WI US - Wednesday, October 1, 2003 2:38 PM CDT
Laura, this is great, and it looks like everything is going well you are in mine and my families prayers~
Sarita Meinking
Holcombe, WI 54745 - Wednesday, October 1, 2003 2:18 PM CDT
Hey! Tayyib's hair looks like dad's!!!
Good thoughts and prayers for all of your family.
Jerry Lineberger <jlineber@uwsp.edu>
Stevens Point, WI 54481 - Wednesday, October 1, 2003 1:24 PM CDT
You will always be in our prayers.
Michael & Sheila McNulty-Bobholz <mmbobholz@holyfamily.edu>
Philadelphia, PA - Wednesday, October 1, 2003 1:22 PM CDT
Laura - thanks for sending me the website. I will watch and pray with you. Thanks for taking the time to write in the journal. It must be difficult to do that along with everything else you are doing. Grace and I will keep you in our thoughts. Jan
Jan Von Ruden <vonruden.jani@uwlax.edu>
La Crosse, WI USA - Wednesday, October 1, 2003 1:12 PM CDT
My thoughts and best wishes are with all of you each and every day. Keep up your strength and believe in the quote, "there is always a rainbow after a storm."
Shirley Gerzmehle <sgerzmeh@uwsp.edu>
Plover, WI USA - Wednesday, October 1, 2003 1:05 PM CDT
I'll pray. I wish I could do more, let me know if I can.
Grant Winslow <winslowg@uwgb.edu>
De Pere, WI USA - Wednesday, October 1, 2003 12:45 AM CDT
Know that you have MANY prayers and positive thoughts coming your way for your entire family. Tayyib is a very courageous little boy!
Kathy Paulson <kpaulson@uwsp.edu>
Plover, WI USA - Wednesday, October 1, 2003 12:31 AM CDT
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