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Sending a hellooo

JUST WRITTING A LITTLE TO SAY HELLO TO ALL OF YOU ! :-)
hUGS!

Hi Jessi,
I know how much you like Strawberry shortcake - so I sent her your way to say hello from me ( Tina)

Miss seeeing you.
Love always,
Tina

Hi Jessi, This is Teee'nnnaa :-) I will miss you very much Jessi, and will miss our little trips to the park and our little picnics together that we had during our sessions. But we will always be close friends - because you will always be in my heart. Love you Jessi!
Tina

Happy Easter from us! Hope everyone had a great day!

Glad to hear you are all home. You're all in our thoughts and prayers!

Happy Valentine's Day!

Ah Sarah, your sweet little one needs a break! I'll check back to see what Dr. Frost says. Please know you're in my prayers.

Hi Jessi! I'm just stopping by to say hi and let you know that I'm thinking of you! I hope you have a GREAT week! God bless and *warm hugs* ><>†<><

Woo Hoo! I'm so glad to hear Jessi is doing so Awesome! Lord knows you've waited long enough for this to finally happen Sarah! Keep in touch!

Happy Halloween!

Sarah,

So sorry to hear Jessi might be having some simple partial seizures, but congrats on the success of the TS Walk--Love the Photos! And congrats to Jessi on all her new learning...knowing the animal sounds for Horse, Cow, Sheep, Bird, Owl, Kitty, Puppy, Monkey, Rooster, and Pig! And repeating almost everything said and putting labels to some objects like cup and table and shoe!

Go Jessi!

Debbie

Sarah,

I'm so sorry things are worse for Jessi~ I guess we just have to be grateful for the good things...

Hang in there,
Debbie

HAPPY MOTHER'S DAY SARAH!

Debbie Fields Murphy, NC Tuberous Sclerosis Assn. FOA/RA <TuberousSclerosis@earthlink.net>
Snow Hill, NC USA - Sunday, May 8, 2005 4:19 AM CDT

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How's Jessi doing Sarah? Thanks for the info for FOA/RA!
Debbie <TuberousSclerosis@earthlink.net>
- Saturday, May 7, 2005 0:30 AM CDT

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I am happy to hear things are going well. Jessi looks great. I love that you update the photos often.
Cheri Erdman
Osseo, WI - Thursday, May 5, 2005 10:48 AM CDT

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Hello Andreo Family,
I was in the surgery waiting room with you the day Jessi had her grids placed (my daughter was having her tonsils out). I have been thinking and praying for you, and am so happy to hear that she is doing so amazingly well. I look forward to seeing more positive reports as she grows and recovers!
Heather Leonard <hdwc_28@yahoo.com>
Savage, MN USA - Wednesday, May 4, 2005 4:02 PM CDT

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I am from the epilepsy surgery support group. She is such a blessing and SO cute. I wish the best.
Ashley Joffrion <charmedbrown_eyes@yahoo.com>
Baton Rouge, LA. USA - Wednesday, May 4, 2005 10:50 AM CDT

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what a little miracle that little girl is.....jessi keep up the good work. god bless you all .....what a strong family....my prayers are with you
carol meyer <meyerca@uwec.edu>
eau claire , wi usa - Tuesday, May 3, 2005 4:18 PM CDT

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I miss all of you. I couldn't believe how well Jessi was walking on Saturday. It's going to be an interesting journey as we watch her progress now. No matter what, she will always be our precious girl. I love you all and can't wait to see you again.

Lori Decker <deckerrl@nnex.net>
Tomahawk, WI USA - Monday, May 2, 2005 4:08 PM CDT

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Jessi, I am so happy you are doing so well. You are a brave little girl. Praise God for your progress. I will continue to keep you in my prayers.
Pat Dressel <pdressel@localnet.com>
Jim Falls, Wi - Saturday, April 30, 2005 2:50 PM CDT

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PRAISE THE LORD FOR HIS MIRACLES !
We know that our FAITH in the Lord is what has given us back "OUR JESSI"... better than ever. What a joy it is for us to see her improving everyday.....talking, walking, and actually understanding. THANK-YOU to the Doctors for doing their VERY BEST and to all of you across the world who have had Jessi in your prayers.
GOD is answering our prayers...........
Love, Grandma Nadine
Nadine Hanamann <NHanamann@AOL.com>
Chippewa Falls, WI USA - Saturday, April 30, 2005 0:00 AM CDT

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Hey Jessie. It was so wonderful to hear you talking the other day. And now you are walking again...Ahead of schedule....Praise God!! I can't wait to see you again.

Love Jason
Uncle Jason <andreoja@aol.com>
Chippewa Falls, WI - Thursday, April 28, 2005 9:16 PM CDT

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Hello Jessi and family!! My wife and I are friends with Al and Sue. I have heard the great news of Jessi's recovery from surgery. You have been in our prayers and our hearts are overjoyed with the news of her arrival home.
Patrick Hukriede <patrick@jacobswellonline.com>
Eau Claire, WI - Thursday, April 28, 2005 10:55 AM CDT

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Hello Jessi and Family. I am ready to start playing with Jessi again. I will come armed with many sensory strategies that we can try with Jessi. Sarah I will try to call you later this week or early next week. I can't wait to see everyone! Welcome home!
Jenny Dykes, SPOTS House <jendykes@yahoo.com>
Chippewa Falls, WI USA - Wednesday, April 27, 2005 10:57 AM CDT

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Sarah and Family~
We met you in the Epilepsy Unit during March with our daughter Zoey. So glad to hear that Jessi's surgery was approved, done and that you are heading home. Your strength is inspiring to us as we continue our journey. Good luck to you. You are in our prayers.

Josie Bemis <dan.bemis@somtel.net>
Somerset , WI USA - Tuesday, April 26, 2005 7:49 PM CDT

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Yeah! I'm so glad you guys get to go home! We will be thinking of you everyday. Hope to see you at the walk. -Maria, Neil and Kylie Gibbons (www.caringbridge.org/mn/kylie)
Maria Gibbons <riau2@aol.com>
Falcon Heights, MN - Tuesday, April 26, 2005 2:59 PM CDT

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HURRAY!! Way to go Jessi!! I am so thrilled that surgery went well and they were able to take the entire tubor. Jessi's doctors are second to none! I can't wait to hear her voice and and very excited that Jessi is talking so much. We knew it was in there! Hope you can come home this week. Will keep up the prayers!

Patty LeMay <plemay@co.chippewa.wi.us>
Chippewa Falls, WI usa - Monday, April 25, 2005 2:25 PM CDT

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God has definitely answered our prayers! We are thrilled to hear how wonderful Jessi is doing!! Hopefully you'll all be home in your own beds tomorrow night!!
Lots of love,
Jim, Eileen and Mary
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN USA - Sunday, April 24, 2005 2:01 PM CDT

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I am so excited that the surgery went well. They were able to remove the whole tuber...Awesome!!! And she's talking already. Way to go Jessi (and the doctors and Children's hospital staff as well!!!) I can't wait to see her. Take care.
Jenny Dykes <jendykes@yahoo.com>
Chippewa Falls, WI USA - Saturday, April 23, 2005 6:05 PM CDT

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PRAISE GOD!!! Just read the news for the 22nd. I will be praying that the Lord gives Jessi a complete healing. God bless all of you.

Fritzie <n8356@sgi.com>
Eau Claire, WI USA - Saturday, April 23, 2005 3:42 AM CDT

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Hi Jessi and Family! Fabulous news! We are so happy for you guys. We will be praying for a speedy recovery. -Maria, Neil and Kylie Gibbons
Maria Gibbons <riau2@aol.com>
Falcon Heights, MN - Friday, April 22, 2005 9:07 PM CDT

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Jessi and family,
I have been waiting to hear how your surgery went and I am thrilled that it went so well. Our prayers will continue to be with all of you! You're a little miracle!

Carol Petska <HTIQC@AOL.COM>
Chippewa Falls, WI USA - Friday, April 22, 2005 8:44 PM CDT

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Dear Jessi and Family.
Just heard from son JIm Hable that Jessi had her surgery. HOORAY! I'm praying for fantastic results. She is in the best of hands. Can't wait to hear when she can go home. Love, Mary's Grammy, Judy Hable
Judy Hable <fruityjudy27@hotmail.com>
Bloomer, WI USA - Friday, April 22, 2005 10:53 AM CDT

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Hey Jessi. I just wanted you to know that I'm thinking about you today and can't wait to read the update. Good luck with your surgery. Hurry home so that we can start playing again.

Jenny Dykes, SPOTS House <jendykes@yahoo.com>
Chippewa Falls, WI USA - Thursday, April 21, 2005 9:43 AM CDT

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{{{{{{{{{{{Sarah, Jeremy, Jessi and Grace}}}}}}}}}}}}}

You will be in my thoughts and prayers and I hope the surgery will finally give Jessi the seizure relief she so desperately needs.

Call me collect if I can do anything to help, even if its just listen...252-747-2786 or 8592!

Hang in there,

Debbie
Mom to Christopher 28 the JOY of my life with TSC (Seizure free since Oct. 1985), Patrick 22 a genius engineer working at NC State University and going to graduate school, Laura 14 just a beautiful ditzy blonde teenager and wife of Rex Murphy for 31+ years

God is watching over Jessi~

Debbie Murphy, NC Tuberous Sclerosis Assn., Inc. <ncntsa@earthlink.net>
Snow Hill, NC USA - Wednesday, April 20, 2005 9:53 PM CDT

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Dear Sarah, Jeremy, Jessi and Grace,
We are praying so hard for you guys that the surgery tomorrow will be a great success! What a blessing that they were able to locate both her motor and speech! Jessi is in the best of hands and she will continue to amaze and inspire everyone she meets. We love you guys!!
Jim, Eileen and Mary
www.caringbridge.org/mn/maryhable
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN USA - Wednesday, April 20, 2005 9:07 PM CDT

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Hey sweety.. I know you will do wonderful thru the surgery. Hurry and get well soon ok? Arianna sends bubbly rasberries your way :)

bridget stull www.caringbridge.org/pa/arianna <tsc_baby@comcast.net >
- Wednesday, April 20, 2005 9:03 PM CDT

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Jeremy, Sarah, Grace & Jessi,
We want you to know we are putting all of you in God's Hands. Our prayers are that you will all be at peace tomorrow and that the Lord will guide Dr. Dunn's hands during the surgery. Turn all of your worries over to God and he will give you this peace. I will be on my way shortly.
Love You All,
Grandpa John & Grandma Nadine
Nadine J. Hanamann <NHanamann@AOL.com>
Chippewa Falls, WI USA - Wednesday, April 20, 2005 5:23 PM CDT

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Hello Andreo family. It was wonderful reading about Jessi's last few days in the hospital. Thanks for the update. We are all thinking about her and saying lots of prayers. Good luck with the surgery on 4/21. That is fast! Patty and I have a birthday present for her when she gets home. Take care

Jenny Dykes, SPOTS House <jendykes@yahoo.com>
Chippewa Falls, WI 54729 - Wednesday, April 20, 2005 3:28 PM CDT

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Hi Sarah, Jeremy,Jessi, and Grace,
What awesome news that surgery is on 4-21!!!It is also terrific about the test results. I am praying that surgery goes well and that Jessi recovers quickly. God is on your side and so am I.
Peace, Patty LeMay Birth to Three
Patty LeMay <plemay@co.chippewa.wi.us>
Chippewa Falls, WI USA - Wednesday, April 20, 2005 1:40 PM CDT

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God bless you as you look forward to Jessi's surgery tomorrow. We are praying for you.
Shelby Galbraith
Fall Creek, WI USA - Wednesday, April 20, 2005 1:18 PM CDT

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Sarah- I was finally able to get on the website tonight. I must have been typing in the wrong address. I read through your journals and realized I am reliving your nightmare w/ my daughter. TS sucks. There is really not a better way to explain it. We are starting our third med tomorrow and we have been discussing the surgery more. It seems to be in our future. Jessi is a beautiful kiddo and we would love to meet her. I actually work at United, on the 4th floor. Depending on when surgery is, we would love to come visit you or I could pop in on my break. We will be at Children's on thursday to see the cardiologist and possibly tomorrow for labs and a chest x-ray, ( I also work tomorrow). I am praying so hard for the surgery to help Jess. Let me know if you would like to get together or if there is anything I can bring you guys. -Maria Gibbons
www.caringbridge.org/mn/kylie
Maria Gibbons (mom of Kylie, 7mo w/TS) <riau2@aol.com>
Falcon Heights, MN - Tuesday, April 19, 2005 10:58 PM CDT

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Hello everyone! Jessi, you are just so adorable with your little Dora hat. We're so glad to hear that everything is going well. As I'm sure we've both learned, these kids are fighters and there is no limit to what they can do. We'll be keeping you in our thoughts!!
Chris, Lacey, and Hunter <lajoris@hotmail.com>
Eau Claire, WI - Tuesday, April 19, 2005 9:07 PM CDT

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Our family is praying for you Jessi. Your pictures are so beautiful. Hang in there! :)


Whitney Berthiaume <whitney@jacobswellonline.com>
Eau Claire, WI USA - Tuesday, April 19, 2005 8:07 AM CDT

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Hi Jessi, I am thrilled that your first surgery has gone well. We hope the second suregery can happen very soon. You are a tremendous beautiful child and we want you to come home soon. We all miss you and your family very much and want to help you become all you can be! We have been praying for you non-stop! Happy Birthday!! Hope you had a terrific celebration!! I know your mom, dad, and Grace are all there holding you up as well!
Dear Sarah and Jeremy, thanks for letting us get to know you. Your strength is an inspiration!! Jeremy, your poem truely comes from your heart-your and awesome dad! Sarah, you are Jessi's champion, never giving up the fight. We are with you!!Grace is also a very strong girl who supports and cheers for her sister! God Bless!
Patty LeMay and the Birth to Three Team(Patty & Jenny)
Patty LeMay <plemay@co.chippewa.wi.us>
Chippewa Falls, WI usa - Monday, April 18, 2005 1:52 PM CDT

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Hi baby girl. We're thinking about you all the time and just about everyone we know is praying for you and your mommy and daddy and Gracie. Love You. -Grandma Sue
Sue Andreo
Eau Claire, WI USA - Monday, April 18, 2005 8:24 AM CDT

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Hi Jessi
My thoughts and prayers are with you and your family.
Remember Jesus loves you!!
Fritzie Mooney <n8356@sgi.com>
Eau Claire, WI usa - Saturday, April 16, 2005 11:54 PM CDT

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Hello Jessi! It was so great to see you and your mom and grandma today. You are so sweet and we enjoyed hearing you singing the baby song! You are so brave--this will all be over soon and before you know it you'll be back home with your big sister. We'll see you soon!!
Love, Jim, Eileen and Mary
www.caringbridge.org/mn/maryhable
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN USA - Saturday, April 16, 2005 10:45 PM CDT

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HAPPY BIRTHDAY ***** JESSI*******
We can't believe you are TWO ! We LOVE you LITTLE SWEETHEART and can't wait until you come home to us.
The hardest part of the Grid placement for me was when the Doctor brought out your little piece of hair with a ribbon tied around it. GOD BLESS YOU !
Hope to see you soon !
Love, Grandpa John and Grandma Nadine
Nadine J. Hanamann <NHanamann@AOL.com>
CHIPPEWA FALLS, WI USA - Saturday, April 16, 2005 1:59 AM CDT

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Mom said Lori called. I am glad to hear everything went well so far!!!!! We are thinking of you.
Cheri Erdman & Mary
Osseo, WI USA - Friday, April 15, 2005 9:01 AM CDT

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Happy Birthday party day Jessi! I hope you are having a great day!!! I've been thinking about you and thought I'd check your site since I haven't seen Mommy on the list in a couple of days. You are in my thoughts and prayers and I hope you have a great day today! I'm keeping my fingers crossed that everything goes well for you!
Susan Jorski <mjorski@comcast.net Michael's site: http://www.caringbridge.org/wa/michaelj>
Kent, WA USA - Saturday, April 9, 2005 5:37 PM CDT

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Sarah (and Family),
Hey! Mom told me about this website... I am really glad! I care about you guys and it is great to keep up on Jessi's health. I love you and miss you! Hope all goes well in the next couple of weeks! FYI, what you all are going through inspires me to be the best Occupational Therapist (after LOTS of schooling)! You are in my thoughts!
Shell
Michelle Gilles <gillmm12@uwgb.edu>
Green Bay, Wi USA - Friday, April 8, 2005 8:44 PM CDT

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We'll be praying for a successful surgery and a speedy recovery for Jessi.
Heather http://www3.caringbridge.org/ny/ethan <hezpezhead@yahoo.com>
Newfane, NY USA - Monday, April 4, 2005 0:23 AM CDT

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Jessi, Sarah, Jeremy, Grace,
I was sad to hear of more seizures on Sat night. My thought and prayers are with you all.
Sue
Sue <sjarn@charter.net>
Chippewa Falls, Wi - Sunday, April 3, 2005 9:20 AM CDT

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Jessi, Sarah, and Jeremy,
I read your article in the Chippewa Herald. This article has hit fairly close to home. I have a nephew, now 6 years old, who was diagnosed with Epilepy at age 3. Unable to get the seizures under control with 5 different medications, he was scheduled for surgery. While he was waiting, my sister looked in to applied kinesiology and cranial massage therapy. Matthew is off all medications for about a year now. Seizures are rare. No surgery was done. His learning delays are minimal at this point. This was in no way to be a cure, only a possiblity of help, but what a help. I would encourage you to take the information I have to offer. The decisions you make are your own. If you want more information please email me. God bless you all and my prayers are with you.
Sue
Chippewa Falls, Wi - Friday, April 1, 2005 7:10 PM CST

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Sarah,Jeremy,Grace, and Jessi,
The article in the Leader/Telegram was very informative and well written. I'm glad you're trying to educate the public about T.S. So few people have even heard of it.
I read your entire journal history today, for the first time. I feel your anxiety and pain of what Jessi and all of you are dealing with. The hardest part is waiting, waiting, waiting. From our own experience with Joey, wanting treatment to happen right now, and when it actually happens is a long, torturous, impatient time. I'm happy to see that you finally have a surgery date. Jessi will be in good hands, and I know Laurie will be 150% there for you---as she has always been. You are lucky to have a great mom who is always there for you.
Take care and know that we are praying for Jessi.

Jane Gilles <oldgirlscout@yahoo.com>
Cadott, WI USA - Thursday, March 31, 2005 10:13 AM CST

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Dear Sarah, Jeremy, Graci and Jessi

I'm so glad that insurance FINALLY approved the surgury for Jessi. I'm constantly amazed by your bravery, strength, and positive attitude through everything - the fear, the waiting, the not knowing what will happen -- through this whole time you've never given up. I know that having to watch a child suffer from the horrific challenges that Jessi has faced and now faces, must be incredibly difficult and painful for you both. Yet you've both stood strong, and faced the challenges head on, and fought for Jessi every step of the way, never giving up. Sarah and Jeremy -- you're amazing parents, and you have an amazing family. And just like you, Jessi is a fighter. She's been through so much, and yet, little miracles happen every day, like saying "mama". She has your strength. I know you'll make it through this. You'll be in my thoughts and prayers all through the surgury. Praying that everything goes well, and a speedy recovery!

Hugs,
Nick and Nora
Nick and Nora Mae Fletcher <littlenloud@yahoo.com>
Mondovi, Wi USA - Wednesday, March 30, 2005 3:38 AM CST

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"PRAISE THE LORD" from California !
So happy to hear the surgery dates have been set.
We miss all of you terribly and can't wait to see you. We will be home soon. Grace was just telling me today she misses her baby Jessi. JEREMY.....your poem went straight to my heart. It was excellent! We Love all of you! See you in a few days.....
Grandma Nadine and Jessi's Big Sister Gracie. <NHanamann@AOL.com>
Chippewa Falls, WI USA - Saturday, March 26, 2005 10:34 PM CST

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Yeah!! Mary Conroy Rules!

It is so great that you're finally scheduled for surgery. Congratulations. You will all be in our thoughts, as always.
Jim, Eileen and Mary Hable <ehable@hotmail.com>
Lino Lakes, MN USA - Wednesday, March 23, 2005 6:06 PM CST

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Sarah and Jess

Just read the fantastic and very moving poem your husband
wrote. I haven't stopped crying since.

God be with you all,
Josephine mum to Greg w/ts
australia
josephine (gregs mum) <www.googsy1g@optusnet.com.au>
nsw australia - Wednesday, March 23, 2005 4:31 PM CST

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Sarah,
What a BEAUTIFUL poem your husband wrote. You are SO LUCKY to have him and Jessi in your life!
Debbie



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Click to join THE TUBEROUS SCLEROSIS CHAT


Debbie Murphy <ncntsa@earthlink.net>
Snow Hill, NC USA - Wednesday, March 23, 2005 0:33 AM CST

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What a joy it was for to travel with Grandma and Gracie to visit Jessie in the hospital. Don't get to be involved like that very often. My love and prayers are with you all ,always. Grandpa John
John M. Hanamann, Jr. <jfurtrader@aol.com>
Chippewa Falls, Wi - Tuesday, March 15, 2005 7:52 AM CST

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Jessie, We are praying for you as your mommy, daddy and doctors figure out how to make you feel better baby girl. All our love from Maine
Rebecca <wolfmaidyn115688@yahoo.com>
Rumford, ME USA - Sunday, March 13, 2005 10:34 AM CST

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Sarah~ Your little girl is very sweet. You have been through so much. We are just starting our journey with epilepsy and our surgical evaluation, but your family's story has given us strength. Many thanks to your mom and her kindness and she helped me adjust to our first day here. God bless you all.
Josie Bemis, your neighbor in 7944 <dan.bemis@somtel.net>
Somerset , WI USA - Sunday, March 13, 2005 8:40 AM CST

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did read some of the paper not good but keep up the sprit are prays are with you, well check now and then to see how you are doing
JAMES OLINGER <olingeja@uwec.edu>
EAU CLAIRE, WI EAU CLAIRE - Friday, March 11, 2005 2:39 PM CST

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Hello Andreos!
Just wanted to tell you it was nice to see all of you yesterday and I hope that the rest of the time in the hospital goes by fast. I'm sorry to read about the evaluation results, but also feel so much hope that Jessi will do great after her surgery. She is a beautiful angel and so many people love her and are praying for her. Sarah, Please don't hesitate to call me if you need ANYTHING!
Lots of Love,
Jim, Eileen and Mary Hable
www.caringbridge.org/mn/maryhable
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN 55038 - Thursday, March 10, 2005 8:58 PM CST

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Thanks for sharing this story of your daughter to me and others. Such a beautiful child. She will definitely be in my prayers.
Janet
Chippewa Falls , Wi - Thursday, March 10, 2005 6:54 PM CST

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Hello again from Mary Hable's Grammy Judy! Jim told me last night that Jessi is back in the hospital so I had to check her website and catch up on her history. My heart goes out to all of you with prayers and warm thoughts. Your concern and news of little Arianna from PA. (?) just tore at my heart as well. It' s true, once you get to know these little angels, they all seem to be part of your family, don't they? Anyway, I just want you to know that Mary's Grammy and Gramp are keeping all of you in our prayers and look forward to hearing of Jessi's progress. Love, Judy Hable
Jduy Hable <fruityjudy27@hotmail.com>
Bloomer, WI USA - Thursday, March 10, 2005 12:47 AM CST

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I hope that your daughter does well in life with minimal suffering,

Kevin
Kevin
Keller, TX usa - Thursday, March 10, 2005 10:43 AM CST

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I read the article in the L-T yesterday. Great article. I hope all goes well this week
Cheri Erdman
Osseo, WI USA - Monday, March 7, 2005 1:44 PM CST

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I read the article in the Leader Telegram and wanted to write and tell you that my heart goes out to your family. My sister was diagnosed with TB when she was about 1-1/2 years old and my mother was pregnant with me. The doctors told my parents that Stacy would be lucky if she lived to see the age of 10, and that the baby my mother was carrying probably had TB as well. 36 years later, Stacy is still going strong and I do not have TB, nor do my children have it.
Stacy is severely retarded and requires complete care such as diapering, feeding, etc. She has far out-lived the doctor's prognosis because of the intense love our family has given to her, and especially my parents. Stacy still lives at home with my parents, and although there have been many hardships through the years, Stacy has made our family very loving and very close.
Please keep the faith and pray to God a lot to give your family the strength to endure all of the hardships. I'm sure you will go through life having your heart broke many, many times as you watch your precious Jessi have seizures and endure the pain. But there will be great times, too, and Jessi will bring you so much joy. Your family is "different" than a lot, and your daughter, Grace, will more than likely be a more loving and compassionate sister and person because of Jessi. I know that my other sister and I sure are.
I will think of your family and pray for you. Best of luck to Jessi and I certainly hope something can be done to curb the seizures. Stacy used to have several a day, too, and for several years it has decreased dramatically to only a few a week, if even that.

God bless your family-


Shannon Todd
Elk Mound, WI - Monday, March 7, 2005 8:44 AM CST

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Andreo Family! Today I proceeded to read your article--knowing every step of the way what you are all going through. You see, my 21 year old daughter has tuberous sclerosis. Without going into too much detail and taking up all the guestbook space, let me tell you a bit about her...she was diagnosed at 2 weeks with TS. She was born with 2 tumors in her heart, tubers on her brain, retina and kidneys, seizures, cognitive disabilities, some autistic tendencies...much of the same involvement that Jessi has. She has been through open heart surgery to remove the tumors when she was 6 weeks; hospitalization for seizures many times; 5 days of epilepsy testing, CT and MRI scans at United Hospital with Dr. Penovich...you name it, she's had it! For the most part, things are under control. I am offering my help, support and experience and knowledge to you. I am, as well, a Parent Volunteer for the TS Alliance Network. I don't have all the answers but I can tell you what worked for us and perhaps guide you in the right directions as Jessi becomes older with county funding and school programs available to her and all of you. But for right now, do the best you can and go with your gut on things and reach out to others who offer their help. That's what got us through! Thinking down the road for Jessi regarding her indpendency and helping her to achieve that is the greatest thing you can do for her! I extend an open invitation for you to contact me if you would like...to e-mail, to talk, to get together and for you to meet April. It always helped me to talk with other parents and meet other children with TS as she grew...I learned so much from them. Our well wishes are with all of you! You certainly are in great hands with the doctors at the MN Epilepsy Group...I owe them for getting my daughter's quality of life back! I wish the same for you. Take care and I look forward to hearing from you!! You're in our thoughts!!
Lori Denzine <sportie883@hotmail.com>
Menomonie, WI - Sunday, March 6, 2005 9:36 PM CST

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I can't wait to get Jessi all to myself next week at the hospital. I get to be the lucky grandparent who gets all the hugs and kisses to myself. Take care until then. I love you all!!!!!!!!!!!!!!
Grandma Lori
Lori Decker <deckerrl@nnex.net>
Tomahawk, WI USA - Thursday, March 3, 2005 8:56 PM CST

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Hi From Michigan, just wanted to stop in and see Jessi's cute face. Read your posts on the TS Board but wanted to put a face to a name.

Take Care
Kate Wooer
Tyler 2 w/TSC and Lauren 8 mos.
Kate Wooer
- Tuesday, March 1, 2005 12:41 AM CST

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Can't wait to see you all this weekend. I know that Jessi is only cranky because she wants her grandma. Wish I could be there more. Love you all. Grandma Lori
Lori Decker <imdaytx2@g2a.net>
Tomahawk, WI USA - Tuesday, February 22, 2005 7:37 AM CST

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I wish you and Jessi the best. Thanks for sharing your story. I will check back and see how your family is doing.
Chris Legg <chrisalegg@aol.com>
Charleston, WV USA - Sunday, February 20, 2005 7:47 PM CST

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What a beautiful child. Your family is in our prayers.
Jennifer Price <opc@elknet.net>
Walworth, WI USA - Saturday, February 19, 2005 6:32 PM CST

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Jessi,
Sorry to hear about your new diagnosis of autism, but I'm sure you know your Mommy is fighting to get you the best care that you deserve. God be with you and your family. Know that our family keeps you in our prayers.
Lots of love,
Sarah and Rebekah Price identical twins, 5yrs w/TS
http://www.sarahandrebekah.twinstuff.com

The Price Family <nprice1@verizon.net>
Altoona, PA - Wednesday, February 9, 2005 6:28 PM CST

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LITTLE JESSE ....GOD LOVES EACH ONE OF US AS THOUGH THERE WERE ONLY ONE OF US TO LOVE. 1 JOHN 3:1 SAYS "BEHOLD WHAT MANNER OF LOVE THE 'FATHER' HAS BESTOWED ON US, THAT WE SHOULD BE CALLED THE CHILDREN OF GOD"!!
KEEPING 'YOU' IN OUR DAILY PRAYERS AND 'PRAYING' FOR A 'MIRACLE' TO TOUCH YOUR BODY.
DON & CAROL GIWOJNA
*STANLEY CHURCH OF THE BRETHREN*

DON & CAROL GIWOJNA <dandc@discover-net.net>
STANLEY, WI CHIPPEWA - Tuesday, February 8, 2005 10:43 AM CST

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I'm finally going to sign the book. I read it all the time but don't take the time to write. You continue to amaze me with the strength you all have. I wish I could be there more so I could be of more help to you. I love being a grandma pillow anytime. You know how much I love the snuggles. I hope you all know how much you are in my thoughts and prayers everyday. You know where I am if you need anything. Love you all. Grandma Lori
Lori Decker <imdaytx2@g2a.net>
Tomahawk, WI USA - Monday, February 7, 2005 2:57 PM CST

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Hi there Andreo's! I just wanted to say hello and let you know that we're thinking about you. We are praying that surgery will be soon. It is SO exciting that Jessi is saying mama! YEAH JESSI!! Take care!
Jim, Eileen and Mary Hable <ehable@hotmail.com>
Lino Lakes, MN USA - Sunday, February 6, 2005 6:33 PM CST

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Jessi is in our prayers. She has been through so much - hopefully surgery will be the answer for her seizures. Lord knows you all need a break!

The pictures are great! You have two beautiful girls! Thanks for sharing Sarah!
Susan Jorski <mjorski@comcast.net /website/ http://home.comcast.net/~mjorski>
Kent, WA USA - Tuesday, February 1, 2005 10:45 AM CST

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Hi Jessi and Mom and Dad!
I'm Mary Hable's Grammy Judy and just want to let you know that I'm praying for your family as you go through all the tests, etc. to prepare Jessi for hopeful surgery. I pray that Jessi experiences the wonderful care and success that Mary experienced just a few months ago. As far as I'm concerned, Jessi is in the best of hands. I live in Bloomer. Maybe someday when winter is over, we can meet little Jessi. I'd love that! Love and prayers, from Grammy Judy Hable
Judy Hable <fruityjudy27@hotmail.com>
Bloomer, WI USA - Friday, January 28, 2005 3:08 PM CST

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Beautiful little Girl!! It is so nice to know that you have the prayers and support of many people who have been exposed to Jessie and Mary's health. (Great doctors too!!) God Bless!
Joel, Roxanne, Emma and Grace Nielsen
Succasunna, NJ - Tuesday, January 25, 2005 7:43 PM CST

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My name is Michele & I work with Jim Hable, whose little one Mary just went through surgery. We've seen only a part of what this journey consists of, but enough to know that these kids are amazing and resiliant and loved so much. So, blessings to your family as you go through the next couple of months and may God wrap his arms around your family as he did the Hable's.
Michele Eide <meide2001@yahoo.com>
Cottage Grove, MN USA - Monday, January 24, 2005 7:41 PM CST

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Sarah (and family)-- I don't know if you remember me from our sleepovers at Aunt OP's house, but I want to let you know that you are always in my thoughts and prayers and if there is ever anything that I can do for you, please don't hesitate to ask. If you wanna chat via email or whatever, I will always be here for you. May God be a constant source of strength and solace for you and your family.
Amanda Henderson Escobedo <amanda.henderson@marquette.edu>
West Allis, WI - Wednesday, January 19, 2005 9:47 PM CST

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You have a beautiful daughter. She looks just like a cabbage patch doll! God bless you and your family.
Tricia mom to Triana 3 months w/TS <snwbnny33@hotmail.com>
Philadelphia, PA USA - Thursday, January 6, 2005 6:48 PM CST

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Thank's : For the Website it is awesome! Jessi,we're all proud of you.The thing that
comes to mind is the song by The Oak Ridge Boy's! Thank GOD for kid's!Sarah
your daughters are such Precious little girls.
We pray you have a Blessed Miraculous upcoming 2005 for healing in all lifes moments. In JESUS name.
Lloyd and Debbie <ldenning@sgi.com>
Eau Claire, WI USA - Thursday, December 30, 2004 5:44 AM CST

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Sarah, you and Jessi have helped me more than you know. I am so grateful for the opportunity to be a part of your lives. You have two beautiful little girls. Thank you for your incredible friendship.
Crystal
Chippewa Falls, WI - Sunday, December 19, 2004 5:08 PM CST

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Hi everyone, Uncle Jason here. Just wanted to say how nice the site looks and that Jessi is always in my prayers. I love this little girl so much (and gracie too!!) I feel so blessed to be a part of her life. She always brings a smile to my face. Not sure how more words can describe how much this little bundle of joy means to me. Jessie you're in my heart, my thoughts, and my prayers....always.....
Jason Andreo <andreoja@aol.com>
Chippewa, WI - Friday, December 17, 2004 0:32 AM CST

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Our prayers have been with you folks and Jessi for some time now. Aunt Shirley keeps in touch with us (I am a niece. My dad was her brother, Jerry.) Even though you don't know us, your story has touched our hearts. May God bless you and your beautiful angel.
Lori and Mike Brotherton
Kuna, ID USA - Thursday, December 16, 2004 12:04 AM CST

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We just thank God for this precious little one. She is such a gift to all of us. Jessi brings so much joy to our lives and we Love Jessi and her sister Grace. It is so rewarding for us to see her starting to climb, talk, and play. The best part though is the hugs and kisses. She says Pa Pa and we are waiting to hear Grandma.
Grandma Nadine & Grandpa John <NHanamann@AOL.com>
Chippewa Falls, WI USA - Monday, December 13, 2004 2:20 AM CST

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Yeah Jessi!!!! Despite those darn seizures you amaze everyone around you with what you do! Sarah--it just warmed my heart to hear that she said "mama"! There is nothing better! You guys are always in our prayers!
All our love, Eileen and Mary
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN USA - Sunday, December 12, 2004 9:43 PM CST

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