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I'm sorry about your son. I saw you recently posted wondering if people even look at this, so this is a note to say that yes they do. It caught my eye that Justin was so much older than the other Mito kids, which is even harder for you. Dont take his site down because it may inspire others. Good luck to you.
Lisa Grady
- Thursday, November 17, 2011 1:21 AM CST

Hello, my best friend in the world has a child with MITO and I agree it sucks. My son HAD cystic fibrosis and had a lung transplant, he also had diabetes and oesteoprosis. He passed on June 20, 2010 and it still feels like yesterday to me, it is not one bit easier toaday than it was right after. My whole life was Chris and his needs so I get what you are saying. My prayers for you and perhaps our sons have met in heaven.
Regina Holsted <reggie9941@yahoo.com>
Mountainburg, AR United States - Friday, April 15, 2011 10:00 AM CDT

Happy birthday Justin!

Tell Mamie and Jesus I love them.

www.caringbridge.org/al/mamieadams
Mamie's Daddy
Huntsville, AL - Saturday, November 6, 2010 9:47 AM CDT

Karen..I'm so sorry to hear about Justin. I hadn't checked in here in *far* too long and I was watching a mito research fundraising video, on someone's facebook and saw it. I am so very sorry for your loss.

www.caringbridge.org/visit/loganandethansmith
Kim Smith <commaqueen70@yahoo.com>
Denton, Tx USA - Wednesday, November 3, 2010 2:44 AM CDT

Hi Karen, I was just thinking of you and thought I would leave you a note. You are always in my thoughts and prayers. Hang in there. Best of luck with your schooling.
Stephanie Roung <all4roungs@bell.net>
St. George, ON Canada - Wednesday, June 9, 2010 12:50 AM CDT

Hi Karen. Just thinking about you and Justin, too. So glad school is going well and you are enjoying that. Love,
Cindy Cruz
Edmonds, wa usa - Monday, May 24, 2010 7:38 PM CDT

Hope you live in peace in heaven! (: I miss you.
Kira P.
Olympia , WA USA - Sunday, April 4, 2010 6:46 PM CDT

Just stopping by to let you know that you are in our thoughts. I hope school is going ok. I hope it helps to know that there are many out here who remember Justin and think about him.
Erica Beyea <debeyea@verizon.net>
Eden, ny - Sunday, March 21, 2010 12:34 AM CDT

Thinking of you Karen- sweet, sweet picture of you and Justin. As directed, I just gave Eva a hug, then she told me to hug Sophie too, so I sent a hug up to heaven for her. Love and hugs to you, as well! Hope to see you soon.
Jennifer Rodriguez <sockfuzz5@comcast.net>
Olympia, WA USA - Friday, March 12, 2010 9:46 PM CST

sweet sweet picture of you and The Justy Boy. Love you and thinking about you. Mom
evelyn brubaker <evelyn@2brus.com>
Mulino, or. usa - Monday, March 8, 2010 8:53 PM CST

Hi Karen,

The picture of Justin and you is so, so beautiful. I'm so, so sorry you are suffering.

Praying for you,
Donna
Donna Henderson <donnamichele@comcast.net>
Orion, MI United States - Thursday, March 4, 2010 11:22 PM CST

May the dawn of New Year leads you to the path of beautiful tomorrows and brings abounding joys, filling your heart with love and home with happiness. New Year is meant for celebrations and spending joyous time with loved ones. May the beauty of New Year be with you forever and your wishes of peace, health and happiness ring true.

Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Friday, January 1, 2010 8:59 AM CST

It's Christmas, hearts reach out and memories come alive in the warmth of love. Once again, it's Christmas - that delightful time of year when hearts are filled with gratitude and homes are bright with cheer. When everyone's remembering good friends and loved ones too - so naturally, the warmest thoughts and wishes go to you. May your home be filled with happiness, your hearts with love, and your days with joy - at Christmas and always! Friendship is a promise strengthened by each smile, each teardrop, and each treasure of life that’s shared. We share so much as friends — thanks for being a very special part of our lives. Merry Christmas.

Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Friday, December 25, 2009 10:32 AM CST

Hi Karen... Just passing by to let you know I'm thinking of you today... Hope you're doing okay...
Jody Poljanski <jpoljanski@yahoo.ca>
Campbellville, Ontario Canada - Saturday, December 12, 2009 11:13 AM CST

Happy Birthday to sweet Justin in heaven. Karen, I think of you often and want you to know that you will always be in my thoughts and prayers.A big hug!
Love Steph
www.caringbridge.org/visit/alexisroung
Steph Roung <all4roungs@bell.net>
On Canada - Friday, November 6, 2009 7:16 AM CST

Hi dear Karen,
Thinking of you very often!
Hugs
Theano
theano delis <tdelis@hotmail.com>
warren, nj us - Thursday, October 29, 2009 1:00 PM CDT

Hi Karen - another checking in on how you are...you'll find a path to healing. One step at a time.

Hope to see picture of your butterfly - sounds beautiful!
Kelly-Ann Larson <kalars69@yahoo.com>
MN - Monday, October 26, 2009 11:46 PM CDT

Thinking of you and your family in your time of sadness.
The Duplessis Family ( Cori from MOM to MOM) <bttrflygrlisback@aol.com>
- Monday, October 26, 2009 10:42 PM CDT

Hi, Thinking about you today! Love to you and Ryan. See you tomorrow.

Cindy Cruz
Edmonds, WA 98026 - Saturday, October 17, 2009 1:17 PM CDT

Praying for your family.
Kate
- Friday, October 9, 2009 5:39 PM CDT

Hey I'm thinking of you.
www.caringbridge.org/visit/sarahnixdorf
Sarah Nixdorf <srnixdorf@yahoo.com>
- Wednesday, October 7, 2009 9:01 PM CDT

Remember you mom2mom quotes. "Just for today...", and "80% of success is showing up!" Much love and support in this time of sorrow.
Dawn Harrison
olympia, wa - Wednesday, October 7, 2009 12:32 AM CDT

Dearest Karen and Ryan, continued hugs and prayers for you both. Justin is so blessed to feel your incredible love for him. I take comfort in knowing he is resting peacefully tonight. As he did here on earth, he is surely making Heaven a better place too. Please let me know if theres anything I can do...Love you.

Heidi and Jack 6, Mito I+III, IV
http://jackryan4.blogspot.com/
Heidi Pierce <jhpierce3@comcast.net>
Des Moines, WA - Wednesday, October 7, 2009 5:58 AM CDT

Dear Karen,
My heart goes out to you and your family. We are so sorry for your loss. James knew Justin since kindergarten, and he too, is sad.
Bonnie Graft <cedars@hctc.com>
Skokomish Nation , WA USA - Tuesday, October 6, 2009 8:56 PM CDT

I will be praying for you all during this difficult time in the loss of your precious Justin!! I am praying for God's presence to be very real and that you will KNOW that Justin is safe in His care and love and waiting for you!! Justin sounds like he was a very special boy and I'm sure he is making heaven a very special place.

kim
www.colesfoundation.com
C.O.L.E. prayer team member

kim
Kim Eisenhuth <keisenhuth@northlc.com>
- Tuesday, October 6, 2009 7:13 PM CDT

I was referred here by Christian Ramirez's site. I am so sorry to hear of your loss. God will be your comfort during these dark days. Reach out to Him.
Lisa C. Huther
Columbia, MS USA - Tuesday, October 6, 2009 1:40 PM CDT

May God give you the comfort and strength you need during this time of sadness. It breaks my heart to hear of your loss. May God bless you and everyone on the Caringbridge website loves you and will be praying for you all.
Eloise Griffin <bug31356@yahoo.com>
Milledgeville, Ga usa - Tuesday, October 6, 2009 11:12 AM CDT

Thinking of you and Ryan today. Missing Justin!
Cindy Cruz
Edmonds, WA - Tuesday, October 6, 2009 10:54 AM CDT

I am so sorry for your loss. We are sending prayers of comfort, peace and strength.

COLE Prayer Team - www.colesfoundation.com

www.caringbridge.org/visit/rileycook

Hugs of love, Andrea
Andrea Cook <ascjac@sbcglobal.net>
Grain Valley, MO - Tuesday, October 6, 2009 10:36 AM CDT

My heart is so sad as i sit here thinking about our little solder. He fought so hard for so long. I have been reading all the wonderful heartfelt messages all of you have left. You will never know how much they all mean to this grandma who misses her baby so much tonight. It has been so hard watching our kids, Justins mommy and daddy lose their son to this dreadful disease. I asked God for peace and HE showed me a butterfly sitting on the ground, spread it's wings and soar up into the heavens. That is what our Justy Boy has done, spread his wings and soared up into the arms of Jesus. Now He has to open HIS arms and hold mom,dad and brother tight until the pain eases up and i know HE WILL FOR MY GOD IS FAITHFUL. Thank you everybody for your out pouring of love at this time. I will close with this as it is getting hard to see what i am writing thru the tears. grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
Mulino, OR u.s.a. - Tuesday, October 6, 2009 1:11 AM CDT

Dear God,

Please take Justins soul and hold on to it with all of you heart and strength. Be with his parents in their time of sorrow. Help them look back on the wondeful and fullfilling life they shared with Justin. Be with justin God and be with his family as they begin their journey of healing.
From my family to yours, Amen.
Cindy
- Tuesday, October 6, 2009 0:19 AM CDT

Karen and family-
I am so sorry to learn of your loss, however for Justin it surely must be a relief to be whole again, without pain and suffering! Try to hold on to that knowing that he's now with Jesus and in total comfort, running free as a child his age should be able to do.

You gave him your very best, and sometimes, that's all we can do for our loved ones! Please know that you're all in my thoughts and prayers and will continue to be in days to come as well! Please keep us updated on how you're doing.

I highly recommend the book "Good Grief" but I can't remember the author's name. Barnes and Noble or another bookstore can help you find it, but its easy reading, simple to understand, and it describes the ten stages of grief that almost everyone experiences in a very "down to earth" way. We don't all experience the same stages of grief in the same order as we're all different people, but almost everyone does go through all the ten stages.

We were given the book when our 2nd child was stillborn at full term. It helped us a great deal.

Hugs and prayers to you all!
Linda Anderson <lka4@mindspring.com>
Topeka, KS USA - Monday, October 5, 2009 9:32 PM CDT

SORRY!
liz <cure4tsd@yahoo.com>
lynn, ma 01901 - Monday, October 5, 2009 9:15 PM CDT

Hi Justin.

This is such a hard time for your family and friends. We are so sad when we lose a loved one, that it is hard for us to focus on the wonderful time you are having now, meeting new friends and discovering exciting and wonderful things where there is no pain, fear, or sadness.

Tell Mamie and Jesus I love them.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Monday, October 5, 2009 8:55 PM CDT

How very lucky you are to have been the family that Justin chose to share his life with. Keep his bright smile near your heart always and you will never be without him.
Amanda Chapman <AmandajChapman@yahoo.com>
Houston, - Monday, October 5, 2009 7:51 PM CDT

Karen and family,
Our hearts are breaking for your loss of ^Justin.^ May your knowledge that he is at peace bring you comfort over the difficult days, months, and years ahead.

Soar high dear ^Justin^ you are now pain free.
Karen & Stacey (TPN Support) <KMNelson86@aol.com>
Garner, NC USA - Monday, October 5, 2009 4:56 PM CDT

I am so sorry for your loss. May God grant your sweet family strength.
Tami
www.paigeandlandon.blogspot.com

Tami Weatherby
Pierce, Co - Monday, October 5, 2009 3:03 PM CDT

Oh my goodness!! I have just learned about your precious Justin. What a beautiful smile he had. I am so very sorry for your loss!!! Please accept my heartfelt sympathies. I will be praying for your family.

“I have fought the good fight, I have finished the race, I have kept the faith. There is in store for me the crown of righteousness, which the Lord, the righteous Judge, will award to me on that day." 2 Timothy 4:7-8

Love in Christ,
Cole’s (Caring Openly, Loving Eternally) prayer team
www.colesfoundation.com
Sandy Daron

Sandy Daron <Jesuslivz@comcast.net>
- Monday, October 5, 2009 12:43 AM CDT

I just found your site from Christian Ramirezes site. I looked at your photos and can't help shed tears for you and your family. I know a piece of your heart has been torn out and it's so hard to face life without your beautiful boy. The grief is so great as you wish to hug and hold him just one more time. It helps to know that many who don't even know you send their love and everyone just wishes they could make it all better. God is still good and Justin is safely in the arms of Jesus. Like all of us, you probably have many questions, but I hope you will be able to seek after the God of all comfort. Much love from one who has been there as a grandma.

Judson's Grammy www.StoryOfJudson.com
Marsha
Ventura, CA USA - Monday, October 5, 2009 12:12 AM CDT

I am so very sorry for your loss..Know that God is with him and he is at peace now. Prayers for you family.
Tasha Sarver <bradensmom14@yahoo.com>
Hamilton, OH US - Monday, October 5, 2009 12:04 AM CDT

Praying for your family.
Kate <prayforkobe@hotmail.com>
- Monday, October 5, 2009 11:55 AM CDT

I am so relieved that Justin can be free now. No more suffering or pain. Keep that in mind during your never-ending grief process
Dawn Harrison
Olympia, wa - Monday, October 5, 2009 10:38 AM CDT

Praying for peace and comfort for your family.

Michele <mr.clearskies@hotmail.com>
- Monday, October 5, 2009 10:10 AM CDT

Praying for you and your family for comfort and peace! You are an amazing family...we are so sorry for the loss of your beautiful son!! He is now pain free and in the arms of the Lord!!

(((HUGS))) and Prayers!!
Terri
www.caringbridge.org/visit/jessegreen
Terri Green <teresag236@aol.com>
Westminster, MD - Monday, October 5, 2009 9:49 AM CDT

Karen,

Please know we care and are praying for peace and comfort with this incredible loss of your precious Justin.

I have been coming here and looking at his sweet face.

May you know His peace.

We care,

Sheila DeKold TPNsupport group
Floyds Knobs, IN USA - Monday, October 5, 2009 9:27 AM CDT

We are so saddened for your loss but in great joy that Justin is now pain free and can join all the other Mito angels out there watching over those of us left on earth. Your battles and strength has been felt through each of us. Justin keep on soaring high those wings look beautiful.
Denise
- Monday, October 5, 2009 8:58 AM CDT

Karen. I am so so sorry for the passing of justin. Please remember you and your family are deeply in hundreds of peoples prayers. I wish there was to make it easier on you.
Porscha waggle <Jddancer5368@aol.com>
Topeka, Ka - Monday, October 5, 2009 8:48 AM CDT

I heard about Justin's passing through another website. I have not followed Justin's journey until now, but I wanted to let you know how sorry I am for your loss. You will be in my prayers.
Bonnie Luskey (mom to Patrick, complex I mito) <bluskey@frontiernet.net>
Belle Plaine, MN usa - Monday, October 5, 2009 7:43 AM CDT

Karen, We are thinking of you all at this time. A great big hug to you. Tell Ryan what an amazing brother he is. We love you guys!
Stephanie Roung
St. George, ON Canada - Monday, October 5, 2009 7:10 AM CDT

I'm so, so sorry.
Danielle <twxee@aol.com>
Norristown, PA - Monday, October 5, 2009 0:34 AM CDT

Karen,
Your message last night was so poignant and beautiful. Your heart was breaking and pure love was pouring out. Being surrounded by you and his dad and Ryan all night gave Justin the opportunity to crossover peacefully. Being an active part of such an event is a challenging journey. For you and Ryan to be there to bear witness and offer up your strength, grace and love is an amazing feat of courage and love.
You will remember Justin and miss him, but you will also remember him and smile. You'll hear his laughter in your dreams, forever more!
May You Find Peace!
Lee
Lee Collins <leecol211@yahoo.com>
Schenectady, NY USA - Sunday, October 4, 2009 10:32 PM CDT

Dear Karen,
I wish I was a little closer to help you and hold your hand. Your angel has gone to a better place. May God give you srtength as you move onto a new phase in your life. We are always here thinking of you and praying for you.
with much love,
Theano Dino's mom
theano delis <tdelis@hotmail.com>
warren, nj - Sunday, October 4, 2009 9:57 PM CDT

Sweet family.. we are so sad for your loss.
We are praying for all of you at this time.
May you find some sense in all of this.
Sadly,
julianna's mommy
millie
hamilton, nj usa - Sunday, October 4, 2009 8:55 PM CDT

Karen i am so so sorry.

words fail me.

Know your in our thoughts, and email any time.

Keely
Winnipeg, mb canada - Sunday, October 4, 2009 8:13 PM CDT

We are so terrible saddened to hear of your loss. The loss of a child is perhaps the harshest of all experiences in this lifetime. Justin is free from pain, but you are just beginning your journey. We hope you find comfort each day as you try to make it to the next. With heartfelt sympathy may the best memories help you during this time of sorrow. Your family is in our thoughts and prayers.
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Sunday, October 4, 2009 7:00 PM CDT

I was made aware of Justin's journey through a prayer chain request submitted by Erika Bradford. My heart breaks for your family. I celebrate with you that Justin is free now, but I carry with you the heart pain of each day without him. May the comfort of the Lord embrace your family and fill you with His divine peace during this time, In Jesus name, amen.
Mary <marykindel@aol.com>
Auburn, WA - Sunday, October 4, 2009 4:33 PM CDT

Karen, Our prayers are with you. May God hold you close during this time. I am so sorry.
Erica Beyea <debeyea@verizon.net>
Eden, NY - Sunday, October 4, 2009 4:25 PM CDT

Prayers are coming your way from our family to yours. We rejoyce for Justin being pain free but our hearts go out to you all as this will leave a void in your family. God will hold you close as you travel this road. Praying hard.

www.caringbridge.org/visit/joshuagarman
Nicole Garman <garman_familly@yahoo.com>
Lumberton, NJ - Sunday, October 4, 2009 4:16 PM CDT

Oh....so sad for you and family.
~Thinking of you!~
Kelly-Ann Larson <kalars69@yahoo.com>
Minneapolis, MN - Sunday, October 4, 2009 3:59 PM CDT

Karen, My heart just breaks for you and your family. Sending tons of prayers your way.

Melissa and Hailee
http://www.caringbridge.org/visit/haileesangels
melissa <angels4hailee@q.com>
chandler, az usa - Sunday, October 4, 2009 3:59 PM CDT

Karen, I am so sorry for your loss. Our prayers are with your family. Justin will always hold a special place in my heart. You are an amazing mom!
LOTS OF HUGS!
Julie and Kylin
Julie Lilly <ljubob@wmconnect.com>
- Sunday, October 4, 2009 3:37 PM CDT

Karen, my heart breaks for you and your family. I am so sorry for your loss. My heart rejoices for Justin -- that he is free from illness and pain. I know there is nothing I can say to ease your pain, but please know that I will be praying for you all. May God grant you peace and comfort.

Blessings,

www.caringbridge.org/visit/austinjshaft

Jesus said, "Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these." Matthew 19:14
Suzanne Shaft <SBShaft@aol.com>
Twinsburg, OH - Sunday, October 4, 2009 3:23 PM CDT

I am very sorry for your loss. I can see from your journal how great a young man Justin was. Our thoughts and prayers are with your family during this difficult time.
http://www.caringbridge.org/visit/jacksonpenkacik
Shawnee Penkacik <sjpenkacik@gmail.com>
WA USA - Sunday, October 4, 2009 2:55 PM CDT

I am so sorry for your loss. My prayers will be with you during this most difficult time.
Meagan and Sophie www.caringbridge.com/visit/sophiaochsner <tooge01@yahoo.com>
Louisville, Ky USA - Sunday, October 4, 2009 2:50 PM CDT

I am so so sorry Justin has passed away. I will keep your family in my prayers and hope that you find comfort and strength from those who surround you in these difficult days.
With love,

Malisa <malisam@comcast.net www.caringbridge.org/pa/malisa>
- Sunday, October 4, 2009 2:16 PM CDT

I am so sorry that your beautiful child was taken too soon. May you find peace that he is whole in heaven. May God wrap his loving arms around all of you and carry you through this most painful time. Your family will be in my prayers everyday of my life.
My youngest grandson has mito diseases. The progression can be so rapid. I pray each day that research will find a cure.
God bless and keep you.

Rossanna Waggle (Christian Ramirez Grandma) <GrandmaToJAAC@aol.com>
Topeka, Ks USA - Sunday, October 4, 2009 2:04 PM CDT

I am so sorry for your loss. We are praying for you and your family.
Amy Drapeau <amyrd@comcast.net>
Puyallup, WA USA - Sunday, October 4, 2009 1:58 PM CDT

I am so sorry for your loss.
Mom to Kyle, Jeremy and Lucas
www.caringbridge.org/visit/lucasmelby
Loriann Melby <lmelby1000@sbcglobal.net>
West Allis, WI - Sunday, October 4, 2009 1:57 PM CDT

I am sorry. No words can ease the pain you are feeling. If you ever need to talk please let me know. I know what it is like to lose a child to Mitochondrial Disease, and I am so sorry for what you are going through. My thoughts and prayers are with you.

www.aspynblock.com
Stacy Block <stacyblock@q.com>
- Sunday, October 4, 2009 1:45 PM CDT

Karen and family, our hearts hurt for your pain, as you grieve Justin. We know he is no longer in pain, struggling, or hurting... but is now free! It is those who love him, who now miss him so very much. We are thinking of you and praying for you, for God's grace, strength, peace and comfort for the many days ahead. Much love, Deb & Scott, Connor's parents, www.connorshouse.org
Deb Millard <dmillard@connorshouse.org>
- Sunday, October 4, 2009 1:39 PM CDT

My dear Karen,
I wish there was a way to take this horrible pain away.
We all pray for you and Justin.
Theano Dino's mom
theano delis <tdelis@hotmail.com>
warren, nj - Sunday, October 4, 2009 10:15 AM CDT

I am so sorry that Justin is struggling and that you and your family have to go through such a difficult time. Know that you have your mito family out here praying for you and sending strength and love. Gentle hugs...
Jnnifer Schwartzott <JSchwartzo@aol.com>
North Tonawanda, NY USA - Sunday, October 4, 2009 9:19 AM CDT

Our thoughts and prayers are with you, Ryan, and of course Justin during this difficult time. I'm so sorry that you're all having to go through this. Hugs to all of you.
Amy Drapeau <amyrd@comcast.net>
Puyallup, WA USA - Sunday, October 4, 2009 2:31 AM CDT

Hi Karen and family,
I wanted to let you all know that we are thinking of you and sending our love, support and prayers,I am so sorry that you are having to go through this difficult time. We are all here for you. HUGS....
Stephanie Cross <babyjessica06@gmail.com>
olympia, Wa USA - Sunday, October 4, 2009 2:20 AM CDT

Karen and family-

Porscha W (Christian's mom) asked for prayers for you- she's a dear friend! Please know we are thinking of you and praying for you all as you have to make such horrible decisions. No parent should ever have to do such an awful task! I am so sorry for what you are having to go through and pray that Justin is not in terrible pain at least! God's blessings -
Linda Anderson <lka4@mindspring.com>
Topeka, KS USA - Sunday, October 4, 2009 0:35 AM CDT

Praying for you all. Hugs...

www.caringbridge.org/visit/pohlaboys
Melody
- Saturday, October 3, 2009 9:29 PM CDT

Prayers for Justin and all of your family - peace, comfort, and healing...

www.caringbridge.org/visit/brentonroberts

Michele <mr.clearskies@hotmail.com>
- Saturday, October 3, 2009 8:45 PM CDT

Prayers, hugs and goodnight! www.caringbridge.org/visit/myjourey2009
Liz <cure4tsd@yahoo.com>
Lynn, MA 01901 - Saturday, October 3, 2009 8:06 PM CDT

Karen, I am so sorry to hear of Justin's condition right now. Please know that I will be praying for you and him tonight. May God grant you peace and comfort as you go through this very difficult time. I'll be thinking of you and wishing the best for Justin.

Blessings,

www.caringbridge.org/visit/austinjshaft

Suzanne Shaft
Twinsburg, OH - Saturday, October 3, 2009 7:59 PM CDT

My heartfelt sympathies during this difficult time. My family and I have fond memories of Justin at McLane, and just attended his wonerful birthday party. Thank you for sharing your beautiful son with us. Justin and Karen, you are a wonderful part of our McLane community. Our thoughts are with you....
Hollie Myhr
- Saturday, October 3, 2009 7:30 PM CDT

May God give you comfort tonight. May you feel His loving arms around you and be granted peace of mind. My heart is breaking for you and know how scary and difficult it is right now. Just two weeks ago we didn't know if our Marianna would live. Each day holds so many unknowns... Just know we are praying for you and Justin.
Darla Klein <ddk61387@msn.com>
Des Moines, Iowa USA - Saturday, October 3, 2009 6:11 PM CDT

Karen,
We are so sad for you. You are the best mother Justin could ask for. Our prayers are covering you and Justin.
Erika Bradford <roberika2@msn.com>
Black Diamond, WA US - Saturday, October 3, 2009 5:05 PM CDT

My family is praying for you. Our two sons have Mito and we cannot immagine the way you are feeling right now. Praying for God's will.
Nicole Garman <garman_family@yahoo.com>
Lumberton, NJ - Saturday, October 3, 2009 2:12 PM CDT

Dear Justin and Karen,
Our hearts, love and prayers are with you in this difficult time.
Be strong! Miracles do happen and they are always beautiful, no matter how God wants them to be.

Leigh mom to Andrew, Complex I,II,III and V

Leigh E <lleighcpe@yahoo.com>
Atlanta, GA - Saturday, October 3, 2009 2:10 PM CDT

Hello Justin and Family,
I just wanted you to know that I have signed on to pray for you and your family. God hears our prayers and I believe in miracles.
God Bless all of YOU,
Carol
Carol Avary <cravary@bellsouth.net>
Flowery Branch, GA US - Saturday, October 3, 2009 12:53 AM CDT

You are in our hearts, our thoughts and our prayers as you go through this valley. I'm so sorry that we can not all be there with you and stand by your side - but know that we are all here! Sending much love.

Erica Beyea <debeyea@verizon.net>
Eden, ny - Saturday, October 3, 2009 12:17 AM CDT

My prayers are with you during this difficult time.
Meagan and Sophie www.caringbridge.com/visit/sophiaochsner <tooge01@yahoo.com>
Louisville, Ky USA - Saturday, October 3, 2009 11:56 AM CDT

I came over from Christian's site to offer support and prayers for Justin and for all of you. Please know that I am praying that Justin does not suffer anymore. I am praying that Justin will enjoy complete healing on Earth or in Heaven. I am also praying that Jesus and His angels surround all of you and hold you tight so that you can feel safe and secure.

"May you see God's light on the path ahead
When the road you walk is dark.
May you always hear,
Even in your hour of sorrow,
The gentle singing of the lark.
When times are hard may hardness
Never turn your heart to stone,
May you always remember
when the shadows fall—
You do not walk alone."
Cathy Ostroski <cathy76a@comcast.net>
PA - Saturday, October 3, 2009 11:44 AM CDT

Just wanted to send a little note along with a prayer for this day...I know from reading the journal, that this is going to be a very busy day, difficult day for you as there are many details to go through. May God give you His perfect peace and hold you in His arms. I know there are no words that can make it "all better", just know there are many, many people praying for you all! Love and God's peace~The Kocourek Family
Joanne K ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
- Saturday, October 3, 2009 11:17 AM CDT

I know that comfort is difficult to find right now, but it will come to you. Justin will send it! I'm so sorry you have to go through this awful loss.
I've been with a lot of adults and children when they pass. Just continue to LOVE him while he is here and know that you can LOVE him after he leaves his body. When he passes he will just leave his body, which has become inhospitable to his Spirit anyway. That's all that will happen. If you're there to witness it you will see how he will just let go and leave his body behind Without his Spirit, his body will become like a beautiful, but empty shell. That's the part of him you will miss. His SPIRIT will ALWAYS be with you.
Peace & Love to Justin and His Loved Ones!
Be Blessed!
Lee Collins <leecol211@yahoo.com>
Schenectady, NY USA - Saturday, October 3, 2009 9:18 AM CDT

Dear Karen,

My heart is so heavy knowing that Justin will be leaving us soon, but at the same time it is full of joy from reading all the beautiful, loving messages people have left you these past few days. You and your family are surrounded on all sides (and definitely from above) by love and support and compassion. An ICU nurse at Children's told me she never cries for the children who pass because she knows where they're going -- she only cries for the families who are left behind. And I know what she means. Justin will be a perfect angel alongside Sophie and Matthew and Gabe, and we your friends and family will be here to support you for the long run. I know beyond all knowing that we will be reunited with our beloved children someday.

With love,
Jennifer
Jennifer Rodriguez <sockfuzz5@comcast.net>
Olympia, WA - Friday, October 2, 2009 11:48 PM CDT

My thoughts and prayers are with you Justin as well as you Karen, Grandma Mary, and brother Ryan. I believe that Kelza, who is a beautiful friend of Grandma Mary's, and is also an Arab Mare at the Sylvan Meadows Farm, continues to send her throughts and love. God bless you.
Michelle Barthule <barthule@comcast.net>
Olympia, WA USA - Friday, October 2, 2009 2:47 PM CDT

HI Karen and Justy Boy, We love you oh so much and my heart is heavy as i read this last entry. It is just not fair he has fought so hard and been such a happy boy most all of the time. I will miss his giggles. I still see him crawling down the hall so fast waiting for me to come chase him and tickle him. I can still hear him laughing. Then he surprised us both by pulling himself up and walking with your help back to me and falling into my lap. That is a memory i will have with me forever. I know he will be set free to run and play but he will be SO missed down here. Karen ,Justin , Ry Bo we love you so so much. Love and prayers grandma Evelyn See you soon.
evelyn brubaker <evelyn@2brus.com>
Mulino, OR u.s.a. - Thursday, October 1, 2009 11:55 AM CDT

Wanted to drop in and of leave a few hugs.
So many are praying and pulling for you.

Julianna's mommy millie
millie
hamilton, NJ usa - Wednesday, September 30, 2009 8:25 PM CDT

Came here from the yahoo! Mito board. I am thinking of you and your family at this time. I am sorry for your pain. Love your baby the best you can.

www.caringbridge.org/visit/rebeccaphelps
Eileen Phelps <zevonsfan@gmail.com>
Glenmont, NY USA - Wednesday, September 30, 2009 8:08 AM CDT

www.caringbridge.org/visit/myjourey2009 Sending nice thoughts to you.
Liz <cure4tsd@yahoo.com>
ma usa - Tuesday, September 29, 2009 7:21 PM CDT

Came over from Christian's site. Praying you have a wonder-full party with your family and friends. Also hoping that your spirits are lifted. I only read the diagnosis and your latest post - so, I have no background - but I know that Jesus heals. You and your precious little boy will be in our family's prayers.

www.caringbridge.org/visit/brentonroberts
Michele <mr.clearskies@hotmail.com>
Allen, TX USA - Tuesday, September 29, 2009 6:11 PM CDT

Praying for your sweet son and your family as you go through this very trying time. May the Lord give you all the peace that you need!

(((HUGS))) and Prayers!!
Love in Christ!
www.caringbridge.org/visit/jessegreen
Terri Green <teresag236@aol.com>
Westminster, MD - Tuesday, September 29, 2009 1:35 PM CDT

I pray for you and your family. For peace and for a feeling of being held in the Father's arms. That you see the joy on your son's face as he enters Heaven and that you will know in your heart and soul and mind that he is happy and pain free waiting to hold you again in Paradise.
Colleen Halwas <chalwas@shaw.ca>
Calgary, alberta Canada - Tuesday, September 29, 2009 12:20 AM CDT

Porscha, Christian's mom, asked me to pray for you! You are all in our prayers as you deal with these tough days ahead. As a mom and a grandma, my heart breaks for you just reading your update. BIG HUG and HUGE amounts of prayers being said for you all!
Linda Anderson <lka4@mindspring.com>
Topeka, KS USA - Tuesday, September 29, 2009 12:12 AM CDT

Karen,
My thoughts and prayers are with you and your family. I am so happy we got to spend a little bit of time at the hospital to catch up on things.

Donna Huggins <hugdonna@hotmail.com>
Laughlin, NV USA - Tuesday, September 29, 2009 12:06 AM CDT

My family is praying for Justin and his soul to find peace with God on his journey, when the time comes. Thoughts and prayers, with all of our love.
Cindy <cindyjo25@live.com>
Topeka, KS United States - Tuesday, September 29, 2009 11:56 AM CDT

Hello! I am a prayer warrior for Christian and I came over to your site to offer prayers for Justin. I understand that Justin is critical right now but there is always hope. I believe that God is there to guide and protect us. I am sure that God is holding Justin in His arms and watching over him. He will heal Christian...on Earth or in Heaven. I pray that you have faith and peace as you continue on this journey with Justin.

Heavenly Father I ask that Justin would have total peace and contentment in every way in his spirit. Let him feel your Holy prescene and know you are right there with him and will never leave him. Thank you Father for this. In the name of our precious Saviour Jesus. amen."

c.o.l.e. prayer team
www.colesfoundation.com
Cathy Ostroski <cathy76a@comcast.net>
PA - Tuesday, September 29, 2009 10:57 AM CDT

Karen, you and your family are truly in my thoughts and prayers. I have checked back on Justin almost hourly during the past 24 hours to see if there is any updates and pray that there is a good update although we know that darn mito is taking him. But if he does reach Heaven he will be pain free and able to run, jump and play. I wish there was a way I could help ease the pain, but there is not. Just know that you have hundreds of people praying for you.

www.caringbridge.org/visit/christianramirez
Porscha Waggle
Topeka, KS - Tuesday, September 29, 2009 10:23 AM CDT

Hi Karen, Justin, and Ryan,
Many happy hugs and prayers have always been with you folks.
Justin has a wonderful sense of the multitude of
love you and Ryan have given him. He has maintained his
sense of humor....remembering the time he was so tired
when you all visited us in Albany and when I
squeezed his hand he gave me that smile of "yeah I know
who your are"....Many hugs and love to you....see you soon!

Jan and Alex
Albany, OR USA - Monday, September 28, 2009 4:59 PM CDT

Karen, I am sending you a big hug from Canada. Stay strong Justin! We love you! Love Steph, Chris, Carter & Alexis
Stephanie Roung <all4roungs@bell.net>
St. George, ON Canada - Monday, September 28, 2009 12:38 AM CDT

Karen, Justin will be made whole in heaven - no more pain or suffering. It's God's promise. I can only imagine how difficult this is for you - there's is nothing stronger then a mothers love. I'm praying for all of you. I'll see you Saturday.

Davie Kindell <dkindell@mclanefire.org>
Olympia, WA Thurston - Monday, September 28, 2009 11:29 AM CDT

To Justin's Mom:
Words cannot express a Mother's love for her son, it can only be felt with the heart. May God hold you as you walk this final journey and hold you even tighter as you walk a new journey. You and your family are in my thoughts and prayers.
(Christian Ramirez Grandma)
Rossanna Waggle <GrandmaToJAAC@aol.com>
Topeka, Ks USA - Monday, September 28, 2009 10:47 AM CDT

Karen, I'm so sorry to hear that Justin is having such a hard time. You both are in my thoughts and prayers! Give him a hug from us.
www.caringbridge.org/visit/beyea
Erica Beyea <debeyea@verizon.net>
Eden, ny - Monday, September 28, 2009 10:35 AM CDT

I will be praying for your family.

Sh-tpnsupport
Floyds Knobs, IN USA - Monday, September 28, 2009 9:31 AM CDT

Justin~

You are such a sweet boy. I am so sorry for all you are going through, but you are such a fighter, and I know how proud your family is of you. Please know you are in our thoughts and prayers, and I will have a little talk with my angel and make sure she is watching over you and keeping you safe. You have put up a great fight!

Thoughts and prayers and lots of love!

Stacy Block
Mommy of Aspyn Block
Unspecified Mitochondrial Disease
11-14-01 to 7-15-02
www.aspynblock.com
Stacy Block <stacyblock@q.com>
Glendive, MT - Monday, September 28, 2009 8:41 AM CDT

I'm sorry to hear about Justin's latest update. You are all in our thoughts and prayers.
Amy Drapeau <amyrd@comcast.net>
Puyallup, WA USA - Monday, September 28, 2009 2:13 AM CDT

Karen,
I am with you in spirit as you make your way through this unbelievably difficult time. Your strength and grace are a gift to both your boys. I believe Justin is aware of your boundless love for him now more than ever. I'm here for you, ready to help in any way I can.
Love,
Jennifer
Jennifer Rodriguez <sockfuzz5@comcast.net>
Olympia, WA - Monday, September 28, 2009 2:03 AM CDT

I'm Justin's uncle and I haven't been there alot of the time. I'm feel very honored for the time that I have gotten to spend with him. He is a very special little boy. It can be hard to believe the fight he has put up. He gets that from his mom and grandfather. I am happy that he will get to a place and be free of it all. Hats off to hus mom for being able to endure through all of the trials and not give up. He will be missed but will always be in our hearts.
Mike Bartin <stnmaysonmichael@aim.com>
Portland, Or USA - Sunday, September 27, 2009 11:46 PM CDT

Karen,
I am so so sorry Justin is doing so poorly. My heart goes out to you and to him as well. I don't know what his capability was to be able to talk before all of this started, but last month, I was so sick, I wasn't able to talk at all, wasn't able to make eye contect or emotionally connect to people in any way b/c I was so so exhausted and feeling so sick. I am saying all of taht to just say that I was still "in there" and still very much aware of everything going on around me, it just felt almost as if I was in a bubble, seperated from the world around me. Anyway, my family would talk to me just as if I could talk back to them and I really appreciated them doing that with me because even though I was so sick and wasn't able to talk back, I appreciated not feeling even more isolated or lonely.

Hope some of what I said helps in some small way. Wish I could do more to make this time easier for you guys.
Malisa
www.caringbridge.org/pa/malisa
Malisa <malisam@comcast.net www.caringbridge.org/pa/malisa >
- Sunday, September 27, 2009 11:40 PM CDT

Sending lots of love and support!
Cindy
Edmonds, WA USA - Sunday, September 27, 2009 10:44 PM CDT

Karen I am so proud of you for your strength and perseverance in Justin's care. He is lucky to have you as a mother. I am so glad to have met Justin when he was feeling well. He's a great kiddo.
Dawn Harrison
Olympia, WA - Sunday, September 27, 2009 10:18 PM CDT

Karen, I am honored to have been able to walk through at least part of this journey with you, Justin and Ryan. You are all in my thoughts and prayers.
Karen Huggins <huggiejk@msn.com>
Olympia, WA - Sunday, September 27, 2009 10:10 PM CDT

~thinking of you and family~
Kelly-ann
MN - Sunday, September 27, 2009 9:40 PM CDT

Stopping by to check in and send love and hugs!C
Cindy <rella19@comcast.net>
Edmonds, WA - Tuesday, September 22, 2009 8:48 AM CDT

Prayers and (((hugs))) coming your way.
Meagan and Sophie www.caringbridge.com/visit/sophiaochsner <tooge01@yahoo.com>
Louisville, Ky USA - Saturday, September 5, 2009 8:02 PM CDT

Just stopping by to see how Justin is doing at home. I'm glad you have some good nursing care! Have you tried Make a Wish? They'd be great for a Disney trip. Take care and keep us updated on how things are going!
Best, Dianne Rios <dirios@live.com>
- Sunday, August 30, 2009 12:37 AM CDT

Lots of Love and Luck to you and Justin. I am glad you both had fun with silly string! It is so important to keep everyone's spirits up. Great Job Karen.
dawn harrison <wontondawn@comcast.net>
- Thursday, August 13, 2009 7:43 PM CDT

Wanted you to know you're in my prayers
luv Kelly
xoxo
kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Thursday, August 6, 2009 3:44 PM CDT

Hi Karen,
I just saw your post on the TPNlist. I am so sorry you guys are going through such a tough time. I certainly understand the feelings you are having--from a slightly different perspective--and understand what an overwhelming effect this disease can have on someone. I wish so much Justin wasn't going through all that he is going through.

With much love,
Malisa
31 yo with mito
www.caringbridge.org/pa/malisa
Malisa <malisam@comcast.net >
- Wednesday, August 5, 2009 2:02 AM CDT

Hi Karen, just thinking of you and wanted you to know that mom2mom sends our love. Keep your spirits up and give Justin a high five for me :0)
Dawn Harrison
olympia, wa - Wednesday, July 29, 2009 6:34 PM CDT

I'm so sorry the surgery didn't work as you had hoped. Justin is lucky to have you on his side- knowing when to fight for answers and when to fight for his quality of life. I can't imagine how difficult it is, but know you are in my thoughts.
I still want to stop by next week now that we all are healthy, IF you guys are still there. Hopefully you will be home by then, but if not I will see if you'd like visitors.
Prayers,
Dianne
Dianne Rios <dirios@live.com>
Redmond, WA - Thursday, July 23, 2009 10:54 PM CDT

Karen I am still thinking of you and Justin. It is a courageous decision to choose not to search for what is wrong. I think it is a wise one at this point, and it is obvious you only want the best for Justin. My love and support is with you.
Dawn Harrison
- Thursday, July 23, 2009 1:47 PM CDT

baby i am so sorry for all you have gone thru and are going thru. we love you so much. Karen, thanks for taking such wonderful care of our awesome grandson. We are praying for you to get better fast.Love you both. grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
Mulino, OR u.s.a. - Monday, July 6, 2009 8:01 PM CDT

Much love and the best of luck that the surgery worked! Karen you are a good mom, way to go on speaking up about the type of small bowel follow through. I am proud of you. Give Justin a high 5 for me and get some rest if you can.
Dawn Harrison, Eric's mom
Olympia, wa - Sunday, July 5, 2009 12:07 AM CDT

Tell Justin we love him.I know it is hard being in the hospital so much, wish I could be there with you. Love, your favorite sister
sharon smith
- Thursday, June 25, 2009 0:20 AM CDT

Hi Karen - Wow I was hoping no news on group meant you and Justin were settling in back home...silver lining about discovery of ilieus (?), I suppose.
Hope you can get home next week!
Kelly-Ann <kalars69@yahoo.com>
Minneapolis, MN - Saturday, June 13, 2009 6:59 PM CDT

Hi Karen, I've been thinking about you a lot. It sounds like you've had a rough Spring. I'm glad things are looking up. Bring Justin over for another ride on the fire truck when he's feeling up to it. Tell him we've planted pumpkins at the station so he can come and pick one out when they are ready.

You, Justin and Ryan are all in my prayers.

Take care.

Davie Kindell <dkindell@mclanefire.org>
Olympia, WA USA - Monday, June 8, 2009 10:57 PM CDT

I am glad he is doing better. We will be praying that everything gets better. Mike said he came to visit the boy. He really enjoyed his visit with him. We will be praying for those mood swings. Sounds like a teenager whoa boy. That is funny that he is saying who hoo. That is what great grandpa B. used to say all the time. lol. Glad to hear about your nursing plans Karen. You will make a good nurse and goodness knows you will have more then your share of experiance. God bless you both love mom and grandma B
evelyn brubaker <evelyn@2brus.com>
Mulino, OR u.s.a. - Friday, May 29, 2009 4:21 PM CDT

Sophie and I are just checking in to see how Justin is doing. I am hoping all is going well. You are always in our prayers.
Meagan and Sophie www.caringbridge.com/visit/sophiaochsner <tooge01@yahoo.com>
Louisville, Ky USA - Wednesday, May 27, 2009 9:27 PM CDT

God bless America and keep us safe and free — Safe from all our enemies, wherever they may be... Teach us to walk humbly and closer in Thy ways, Give us faith and courage and put purpose in our days, Make each one of us aware that each must do his part, For in the individual is where peace must have its start — For a better world to live in where are all safe and free Must start with faith and hope and love deep in the heart of me. ~ HELEN STEINER RICE ~

The beauty of a life well-lived becomes a legacy that stays behind and warms the heart with every memory. Our family is thinking of you on Memorial Day wishing you peace and happiness today and always.

Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Sunday, May 24, 2009 3:57 AM CDT

There are times when only a Mother's love
Can understand our tears,
Can soothe our disappoints
And calm all of our fears.
There are times when only a Mother's love
Can share the joy we feel
When something we've dreamed about
Quite suddenly is real.
There are times when only a Mother's faith
Can help us on life's way
And inspire in us the confidence
We need from day to day.
For a Mother's heart and a Mother's faith
And a Mother's steadfast love
Were fashioned by the Angels
And sent from God above.

Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Sunday, May 10, 2009 8:14 PM CDT

Wow what a fatty.over 62 pounds.That is great but i can just see you picking that boy up from the floor.I will be praying for your back my dear. That is great to hear tho. Love you both. grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
Mulino, OR u.s.a. - Tuesday, April 28, 2009 4:57 PM CDT

Karen, that picture is AWESOME! Oh, that is amazing! Thanks for sharing that. I'm so happy he's doing well and you will get a much needed break soon! Love, Cindy
Cindy Cruz <rella19@comcast.net>
Edmonds, WA - Tuesday, April 21, 2009 9:34 AM CDT

Wow Karen what a great job she did on the picture of THE JUSTY BOY !! I am impressed. Thank you for sharing it. i love it !! I am so glad you have a place for him to go so you can have some me time.
evelyn brubaker <evelyn@2brus.com>
Mulino, OR u.s.a. - Monday, April 20, 2009 9:30 PM CDT

Karen, so good to read the good report. I was just looking at the pictures i took of Justy Boy while i was up there a couple of week ends ago and he looks so much better then he did in Nov. It is remarkable.Praise be to our MIGHTY GOD and the drs. He has provided. I will be praying that you find a church for you and The Boy, that is important for both of you.love you both. mom
evelyn brubaker <evelyn@2brus.com>
Oregon City, or. u.s.a. - Thursday, April 9, 2009 8:33 PM CDT

Hey Karen,

Wow - Im so sorry to hear how rough things have gotten... I think of you guys often.

I know how exciting it is to get back to school - Brandon was off for 3 months this winter, and is thrilled to be back now...

Heres to a quiet uneventful summer for both of us!!

Keely
www.caringbridge.org/visit/brandonandtyler
Keely Schellenberg
- Thursday, April 9, 2009 2:51 PM CDT

Hi Karen and Justin, I am SO glad to see that you are doing so well since you returned home. What a miracle for Justin to be gaining weight and just feeling so much better! Going to school again, playing and able to even think about walking...God is so good! Karen, I hope you find a church for your family to go to...that would be a huge step in finding support for everyone. I wish I could come up to see you, maybe in a month or so after Uncle Denny heals from his hip replacement surgery. Keep up the good work Justin! I love you!
I send my love and prayers to each of you. Auntie Lauri

Lauri Baker <lauri.baker@comcast.net>
West Linn, OR United States - Tuesday, April 7, 2009 11:09 PM CDT

Hi, Karen! So happy to hear that Justin is doing well. YEAH! Hoping you find a really supportive church family down there. It can be so much support. Love and hugs to you both,
Cindy
Edmonds, WA - Sunday, April 5, 2009 4:47 PM CDT

Hi Justy Boy. I had such a good time with you this past week end. I am so glad i got to come up and visit with you and give mom a little short break. Karen you are doing such a great job. I just can't believe how happy he is most of the time. What a big job you have.With Gods help you will do great. love you, Mom
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Sunday, March 29, 2009 11:11 PM CDT

Hi, Karen and Justin! So glad you are home and getting settled. Can't wait for you for the time that you are off of the antibiotic schedule. Thinking of you, tell Justin hi!
Cindy Cruz
Edmonds, WA - Wednesday, March 25, 2009 3:21 PM CDT

My dear Karen, I am so sorry for all that you and Justin are going through. It is wonderful that you are going home tomorrow! I think you are an amazing young woman who I respect so very much. God has given Justin the amazing mother that he needs during his time on this earth. I am certain that He will be right by your side each moment of each day helping you with all that you need to do. I am pleased that Justin has joy in his life...joy that you, Ryan and your mom can enjoy. All my love to you, sweetie...please give Justin a big hug and kiss from his Auntie Lauri
Lauri Baker <lauri.baker@comcast.net>
West Linn, OR United States - Friday, March 20, 2009 11:28 PM CDT

Thinking of you today and hoping things go smoothly so you can get out of there! Love, Cindy
Cindy Cruz
Edmonds, WA - Friday, March 20, 2009 11:00 AM CDT

Karen we can't wait to see Justin too. I hope he gets out and stays out of the hospital on Monday.

The gang at McLane!!!
Susan Timm <suzfish@earthlink.net>
Olympia, WA usa - Thursday, March 19, 2009 3:45 PM CDT

Karen,
I was very sorry to hear that Justin was back in the hospital. My thoughts are with you and I know all of McLane is thinking about you too.
Amy Ottavelli (OT) <amy@ottavelli.com>
Olympia, WA - Wednesday, March 18, 2009 4:04 PM CDT

Hi Karen

I am so sorry about Justin. I hope they can clear up the infection. We miss you, Justin!!

Susan Timm McLane
Susan Timm <suzfish@earthlink.net>
Olympia, WA USA - Wednesday, March 18, 2009 12:19 AM CDT

Karen,
I'm so sorry you guys are back in the hospital. Tell Justin we really miss him and to get well.
Joan wanted me to pass on to Justin that she misses him.
Julie Lilly <lilyj@osd.wednet.edul>
- Tuesday, March 17, 2009 5:04 PM CDT

Hi Karen and Justin~
Glad to hear Justin is getting back to his normal self! I know its just sooo comfortable there :o) and I'm SURE you are sleeping wonderfully, and you just don't want to leave because you are so relaxed... :o) but there's no place like home! I'm glad you will be there soon!
Thoughts and prayers stil with you!
Kristine (and Karli & gang)
Shelton, WA USA - Thursday, March 12, 2009 11:44 PM CDT

Hi Karen and Justin

We miss you Justin. We hope you go home soon

The Life Skills gang at McLane
Susan Timm <suzfish@earthlink.net>
Olympia , WA USA - Tuesday, March 10, 2009 10:40 AM CDT

Hey Karen, we're thinking of you guys, we really miss the little guy at school. He really brightens the place up. I've got your # up at the hospital, so expect a phone call soon.
Mr. E
Oly, Wa USA - Wednesday, March 4, 2009 2:45 AM CST

We are praying for Justin. I hope the line placement goes smoothly and you can be back home soon.
Meagan and Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Tuesday, March 3, 2009 11:24 PM CST

Good Luck today Justin! We are praying for you! You look like such a great kid and I hope you are able to go back to school soon! Take Care!

Melanie and Jonathan
www.caringbridge.com/visit/jonathanzavala
Melanie <melani04@yahoo.com>
Los Angeles, Ca USA - Tuesday, March 3, 2009 1:27 PM CST

Hi Karen, just want you to know we are praying for you and Justy Boy. I am so sorry he has to be such a sick little guy. Sometimes life is just not fare. One day there will be no pain and no sickness. Just hang in there and know where your strength comes from. Give The Boy a hug and a kiss for us and tell him we love him. I will come up when he gets home. Maybe while i am there you can have a day out just for Karen. love you both gramma and grampa B
evelyn brubaker <evelyn@2brus.com>
mulino, or. - Tuesday, March 3, 2009 11:30 AM CST

Hi, Just stopped by your site to say hi and see if there is an update. Just know I am praying for both of you. I'll talk with you tomorrow,

Cindy
Cindy Cruz
Edmonds, WA - Friday, February 27, 2009 11:51 PM CST

Dear KAren and Justin: I know the struggles you go through. And Powerlessness is so overwhelming at times. Just know that we are praying for you both and for a break-through in all that is happening. All of us miss you and hope to see you home soon. We love you.
Ada, Dan and Alitta <lupi8688@yahoo.com>
Olympia, Wa Thurston - Friday, February 27, 2009 9:31 AM CST

I can't wait until you're back. I've got a spot up front so we can be silly!

You guys are both in my prayers.
Jim Wall <jim@wallshots.com>
Olympia, WA USA - Wednesday, February 25, 2009 7:40 PM CST

Mom to Mom group is meeting right now in Oly... we're all thinking of you and Justin! Hope you two can feel the love all the way up at CHRMC. Glad to hear Justin is gettin' fiesty, that's a good sign for sure. Let us know what we can do to help. No, REALLY! Love from all of us- Jennifer, Sylvia, Karen, Erika, Dianna, Dawn, Kristine, Stephanie, and new mom Jamie : )
Jennifer Rodriguez <sockfuzz5@comcast.net>
Olympia, WA - Tuesday, February 24, 2009 9:38 PM CST

My thoughts are with Justin!
Sarah Linton, MA CCC/SLP <sj_linton@yahoo.com>
Olympia, WA USA - Tuesday, February 24, 2009 1:55 PM CST

Justin is in my thoughts and prayers!
Lee Collins <leecol211@yahoo.com>
Schenectady, NY USA - Monday, February 23, 2009 2:04 AM CST

We are stopping by to check on Justin. We have been praying for you and Justin. I hope you guys are back home! Keep us posted.
Meagan and Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Sunday, February 22, 2009 2:34 PM CST

Hi,thinking of you and praying for Justin

Love, Cindy
Cindy Cruz
Edmonds, WA - Wednesday, February 18, 2009 8:33 AM CST

Just stopping by to check in on you and to say hello, this Valentine's Day. Though I haven't said "Hi, there," in ever so long don’t think for a minute that anything's wrong — I keep pretty busy with things I must do, but I think of you often —believe me, I do.

Valentine treasures are people who have often crossed your mind, family, friends and others, too, who in your life have shined the warmth of love or a spark of light that makes you remember them; no matter how long since you’ve actually met, each one is a luminous gem who gleams and glows in your memory, bringing special pleasures, and that’s why this Valentine comes to you: You’re one of those sparkling treasures!

Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, February 14, 2009 10:10 AM CST

Karen and Justin, i am so glad you are both home. what a long hard week you both have had. we are still praying for you both. Lord give them both strength. Refresh them in mind body and spirit.let them feel you near.thank you Jesus.
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Monday, February 9, 2009 10:57 PM CST

So glad you guys are back home. We will be praying for Justin's continued progress. It's good to hear that he is able to appreciate silliness. We all need a little silly in our day :)
Meagan and Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Sunday, February 8, 2009 9:46 PM CST

Justin, we are praying for you to feel better soon! Karen - hang in there!!!
Erica Beyea <debeyea@verizon.net>
Eden, NY - Saturday, January 31, 2009 9:25 PM CST

Karen i am so sorry for what you are going thru. You are such a trooper. I know all of this must be so hard for you and on you. in body as well as emotion.Is there something i can do?let me know. how was the dr. apt.? Give Justy Boy a big hug for me and tell him i love him very much.Love , mom , grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Monday, January 26, 2009 9:48 PM CST

Hi Justin! I hope you wre feeling good! I just wanted to send my Love, i pray that God keeps you close! Be nice to your mom!Ha! HA! I hope to get to see you soon. Good bye your friend forever! Chris Williams
Chris Williams <rcwilliams55@gmail.com>
Moore, ok ok - Tuesday, January 20, 2009 5:39 PM CST

Aren't our little dogs silly. Frank and I let our two out, and Frank went back inside, the puppies were racing around the yard and little bits decided to run back in and ran smack into the sliding door, he hit hard, he sat there and whinned it was funny.
Praying Justins Stomach problems clear up.
Melisssa and Hailee
http://www.caringbridge.org/visit/haileesangels
melissa <meltrejos@cox.net>
chandler, az usa - Saturday, January 3, 2009 7:58 PM CST

We huddle by the fire on this bitter cold night,
Enjoying hot cocoa by the warm fire light.

While the smells of a feast fill this rickety old shack,
Icy winds whistle as they dance through the cracks.
Surrounded with blankets, sweet carols we sing,
Happily awaiting what this Christmas will bring.

You won't find any presents 'neath our skimpy tree.
Ornaments are hand-made and so is our wreath.
Under limp mistletoe, mom gives dad a kiss,

Atmosphere of joy and love

Merry Christmas to all of you.
Everyone here at our house is thinking of you.
Remember Christ loves you, no matter your worth.
Revel in the illuminating joy of His birth.
Your love is the only gift He'll ever ask.

Celebrate His life and in His light you'll bask.
Holiday giving and the spread of good cheer,
Really is something we could keep up all year.
Imagine a world where it was Christmas each day,
Sounds hard to do, but it could be that way.
This is our Christmas wish for all of you tonight--
May His warmth surround you like a blanket of light.
All your wishes be granted with His blessings of love,
Sent special delivery from the Angels above.

Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Wednesday, December 24, 2008 7:36 AM CST

Karen,Ryan,and my little spiderman, happy holidays....Miss, miss you all. Justin sweetie i miss those days. I will always think of you as my spiderman, superman jumpinping of my couch with your cape on, scareing me all to pieces sweetie, and you saying to desirae that you wanted to marry her... I would gladly grant that request!! I cannot express karen what i feel for u, and yours, but I do know that no matter what you will all be apart of me, chey, and little dez. I have picture's of your little superman, and just so you know he was my sunshine along with my girls on the bad days. Yea, I know you could tell... I have never forgotten little justin! If you wanna know the truth, he was like my babie too, and even though you knew what i was going thourgh, you never said. It was unspoken i think, but i want u to know,i want to see you all so bad. Sorry I didn't keep in touch girl!!!!!!!!! Kiss that Little Harry Potter, and our little spiderman.......This is my friend Guys email so its ok in america!!!Merry Christmas, and all the most heartfelt prayers eternally. Always me
Mary Swearingen <Guycojoel@comcast.net>
Hillsboro, Or USA - Wednesday, December 24, 2008 6:56 AM CST

Hi Karen,
Just stopped in to see how you all are doing. Happy Belated Birthday to Justin! That is great about you going to school to become a nurse! I hope you enjoy the holidays. Love Steph & Alexis
www.caringbridge.org/visit/alexisroung

Steph
St. George, ON CANADA - Monday, December 8, 2008 9:06 PM CST

Happy Thanksgiving to you all. Thinking of you with many happy thoughts and prayers. Take Care Debbie
www.caringbridge.org/visit/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, CA USA - Friday, November 28, 2008 1:24 AM CST

Thanks Karen for bringing Justy Boy down the Sat.before his birthday so we could have a B Day party for him.I believe he had a great time. He had more fun playing with the lid to the cake i think then all the toys and clothes he got.Hannah had fun helping him tear open his gifts. I just love it when he laughs and smiles.He is just so happy most of the time!!We love him bunches.Mom (grandma evelyn )
evelyn brubaker <evelyn@2brus.com>
m, or. u.s.a. - Sunday, November 16, 2008 8:18 PM CST

Happy Birthday Justin, Praying you have an awesome day.

Love Melissa and Hailee
http://www.caringbridge.org/visit/haileesangels
melissa <angels4hailee@embarqmail.com>
vass, nc usa - Thursday, November 6, 2008 12:38 AM CST

Happy 11th Birthday Justin! I hope you have an awesome day and you get everything you want!!
Heather Nichols (caringbridge.org/visit/alexisnichols) <hmnichols343@yahoo.com>
Hope, MI USA - Thursday, November 6, 2008 11:34 AM CST

Was just checking on Justy boys page. Tell him that Aunty Bev loves him and thinks of him often. I am so proud of you and I pray for you as I know it isn't easy. Our boy Xander is in Autism classroom this year, which means 1:1 assistant for him. Debra found a child care person who has a wonderful background in early childhood education and special education. She has a routine that they do and so far it has been good. He is 4 today, Nov. 4th and is still talking his own language. Charlie, Larry & Steve are all working hard and our lives are very busy. Love ya,
Bev Vilhauer <bvilhauer @comcast.net>
Oregon City, OR USA - Tuesday, November 4, 2008 4:28 PM CST

Hey Girl,

Wow.....the bird has left the nest... so exciting to be out on his own, but yes so sad for you and Justin......I bet Justin will miss him tons...and you too....It must be hard to see your baby go ! ! ! I was thinking of you this week and our fun trip we shared....Megan is getting a wish granted from Children's Wish here in Canada. Stephanie called and submitted Megan's name and surprised us...so exciting..I think we might take her on the Disney Cruise...Are your pics on your page from a disney trip too? I would love to talk about how it works out with disability and heat, and exhaustion...

Kisses and hugs from your crazy canuck friend
xxoxoxo Christine x0x0x0x0x0x0x
www.caringbridge.org/visit/megangowland
christine gowland <christine_gowland@yahoo.ca>
burlington, ont canada - Saturday, October 25, 2008 6:51 PM CDT

Well, that is going to be hard for you. Ryan moving out i mean. i know how much help and support he has been for you and Justy Boy! i know you have to be proud of him growing up tho. Karen you have done a great job with both of your boys. you should be proud of yourself. give Justy Boy a big fat hug and a kiss for me. love you both . mom
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Wednesday, October 8, 2008 11:18 AM CDT

Hi Justy Boy , I miss you too buddy. I love you too. I would love to come see you again. Hannah misses you too. I will email mama and tell her what is going on but right now i am in Arizona visiting my sister. Love you bunches.and have fun in school grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Monday, September 22, 2008 6:45 PM CDT

Hey You,
Apparently they want to test Megan and her little cousin Jacob for POLG...can you give me some insight into it please....
Kisses from Canada
www.caringbridge.org/visit/megangowland

christine gowland <christine_gowland@yahoo.ca>
burlington, ont canada - Thursday, September 11, 2008 12:10 AM CDT

Karen and Justin,
It is so nice to hear that your summer is filled with wonderful trips and adventures. You definetely deserve all of it.
Hugs
Theano and Dino
theano delis <tdelis@hotmail.com>
warren, nj us - Saturday, August 30, 2008 9:03 PM CDT

I wish for you...
Comfort on difficult days,
Smiles when sadness intrudes,
Rainbows to follow the clouds,

Friendship to brighten your being,
Beauty for your eyes to see,
Confidence for when you doubt,

Faith so you can believe,
Courage to know yourself,
Patience to accept the truth,
And love to complete your life

Just popping in to say ~Hi~ while I had a few minutes..hope all is going well for you
Know your in Our Thoughts & Prayers Always...

Joanne~
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, August 2, 2008 11:35 AM CDT

O.M.G. How touching is the soldier story from the airplane ride....wow..I was balling my eyes out reading it....what an amazing gesture....yes Justin is a little soldier...here in Canada we call all the kids Mito Warriors...I hope Justin start s feeling better soon....the weather here at the cottage sucks...rain lately...but we have been fishing....and four wheeling when it's dry out...and there is no humidity up here....
Sending you love...say his to the boys for us.....kisses to you Karen.....xoxoxoxoxoxo
Christine...
www.caringbridge.org/visit/megangowland

christine <christine_gowland@yahoo.ca>
burlington, ont canada - Wednesday, July 23, 2008 5:18 PM CDT

Hi
We got your webpage from our friend Landon Weber and wanted to send along "hello's". Our children have alot in common although my 4 yo dd does not have a definitive diagnosis. Just thought we would drop by and say hello.
Dawn & Ruby
www.caringbridge.org/visit/rubytinsley
Dawn <dzign87@metrocast.net>
NH USA - Tuesday, July 22, 2008 12:53 AM CDT

Hi my Justy boy,and Karen, yes i read your entry and i will be back to see you soon buddy boy,only this time Taylor would love to come so maybe i will bring her.Hannah has told her all about you and she wants to see you.It has been so long since she has gotten to spend one on one with you.love the picture of you at the zoo. The caterpillar picture is adorable. Love it and love you. I will be praying for both of the solders. The one fighting for our country and the one fighting for his life. God be with both of them. Love you grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Tuesday, July 15, 2008 9:49 AM CDT

Such a handsome young man!!! Praying he starts to bounce back to his norm....hate when they are feeling "off". Thanks for sharing the story of your soldier...he will definitely be in my prayers. Hope you have a wonderful 4th!!
The McNair's http://www.caringbridge.org/visit/mcnairs
Dallas, TX US - Thursday, July 3, 2008 8:12 PM CDT

Karen! YOU were another person I was hoping to meet at INDY- oh well... ??next year!
CamelBak's ROCK! They are the only way Grant's drinks outdoors any more......what a great story of Soldiers!
Kelly-Ann Larson <kalars69@yahoo.com>
Richfield, MN - Thursday, July 3, 2008 7:01 PM CDT

It was great to meet you at the conference.
HAPPY 4TH OF JULY HOPE YOU HAVE A FUN AND SAFE ONE! SENDING LOTS OF HUGS AND PRAYERS YOUR WAY! XOXO

http://www.caringbridge.org/visit/blakewhite

Larissa Komm <lkommer_1@yahoo.com>
Metropolis, IL USA - Thursday, July 3, 2008 1:18 PM CDT

Hi Karen,
It's Steph, one of the Canada 520 girls. I was so glad to meet you, you are so much fun. Ryan is such a great brother to Justin. I hope that Justin had a good weekend too. I miss seeing all of the mito moms from the UMDF symposium, I wish we all lived closer as it was a great support talking to everyone. Take care, Steph & Alexis
www.caringbridge.org/visit/alexisroung

Stephanie Roung <all4roungs@rogers.com>
- Tuesday, July 1, 2008 10:43 AM CDT

Hi Justy boy, I sure do love you! I had so much fun with you last week end. So did cousin Hannah. I will have to send you some pictures i took of you and her. I was very worried about taking care of you alone but we did okay huh buddy? I could not believe how good you ate. I love your dimples when you smile big. You are such a cutie and i love you bunches and bunches. Karen i am glad you got to have some much needed girl time after the symposium. Sounds like you and those Canadian girls had a little bit of a fun time out. A ?
: ) Thats a good thing. Grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Tuesday, July 1, 2008 10:09 AM CDT

Hi Karen, Ryan and Justin......
Just wanted to stop in say Hi.....missing you guys already....It was really great to meet you, and Ryan- what a mature guy he is .....We had a blast....Can't wait for next year....Canada 520.......
Christine...xoxoxoxoxox
Christine <christine_gowland@yahoo.ca>
burlington, ont canada - Monday, June 30, 2008 10:06 PM CDT

Hey, girl.... It's one of the 4 "Canada 520 Girls...."

What a fantastic time we had!!! I'm so happy to have met you (and your son) and can't wait for you to come up to Canada!!!! Any time you're ready, lemme know!!!! Will definitely send you pictures!!!! Email me privately - send me your mailing address....
Jody Poljanski <jpoljanski@sympatico.ca>
Campbellville, Ontario Canada - Monday, June 30, 2008 7:18 PM CDT

Karen i am so excited for you and the other families that get to meet up and go to the conference, guess im jealous too wish we could go.....one of these years i would love to put faces to names, ect...
Praying you guys have an awesome time.
Melissa and Hailee

melissa <angels4hailee@embarqmail.com>
vass, nc usa - Monday, June 23, 2008 7:11 PM CDT

Congratulations to Ryan on his recent graduation. I believe I recall seeing your kids at the SanDiego UMDF waiting in line to see Jack Black? Thoughts and prayers go out to you guys. My daughter Taryn suffers from Mito disease as well. My husband (EJ) and I will be in Indy too for this years UMDF symposium. Hope to see you. Take Care Debbie
www.caringbridge.org/visit/taryn
debbie fogel <ejfdrf@sbcglobal.net>
Corona, ca usa - Monday, June 23, 2008 8:37 AM CDT

WOW..I am so excited about Indy, I hope we can meet up as well, so many new people to meet....I will definately stop by your booth.....See you in a week....
Christine Gowland <christine_gowland@yahoo.ca>
burlington, on canada - Friday, June 20, 2008 8:26 AM CDT

Karen,

Just checking up on your little man to see how he's doing. I hope he feels more himself soon. BUT GREAT job on eating the hamburger! pic-nics are in order!

I just wanted to thank-you for letting us borrow the Convaid for our Disney trip. You were so sweet to offer and I cant thank you enough or tell you what that meant to us. So many wonderful people out there, willing to lend a hand, Thank-you. It was a true lifesaver. Jack loved it, his fitting appt for his own is next month. I really think this is what we need.

Give Justin a HUGE hug, from Jack and I.

Heidi and Jack Pierce <jhpierce3@comcast.net>
Des Moines, WA - Thursday, May 29, 2008 3:35 AM CDT

There are times when only a Mother's love
Can understand our tears,
Can soothe our disappoints
And calm all of our fears.
There are times when only a Mother's love
Can share the joy we feel
When something we've dreamed about
Quite suddenly is real.
There are times when only a Mother's faith
Can help us on life's way
And inspire in us the confidence
We need from day to day.
For a Mother's heart and a Mother's faith
And a Mother's steadfast love
Were fashioned by the Angels
And sent from God above.

Happy Mother’s Day

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, May 10, 2008 11:00 PM CDT

Justin I go in and look at your pictures every so often and pray for you. Xander (Charlie's son) is here at my house today. I guess they have concluded that he has Autism. He is very sweet and I love him so much. He has a web site also. Have a great day and bring us some more sunshine. I need it.
Auntie Bev - Vilhauer <bvilhauer@comcast.net>
Oregon CIty, OR USA - Thursday, May 8, 2008 6:04 PM CDT

Hello justin.. Wanted to say hello to you and your mom... We have been thinking of ya.. Hope to see you guys again.. Huggs shawnte and trey
shawnte <shawntejensen@aol.com>
puyallup, wa us - Saturday, May 3, 2008 1:29 AM CDT

Hi! I'm glad to hear things went ok at the hospital last week. I am working on a guy at Evening Magazine to do a story on mito featuring your family. I will definitely keep you in the loop but keep your fingers crossed. If we get this we will likely use it at the auction for the 'raise your paddle' segment where we typically show a video. So exciting!
Ashley Farrington
Woodinville, WA USA - Sunday, April 20, 2008 11:12 PM CDT

Hi Justin!

I wrote an entry for your Mom, but now I want to say hi to you! From what I hear, I think you and my son Craig have a lot in common. I wish we didn't live so far away from you. (We live in Michigan.)

May God give you lots of good days ahead and happy times with your Mom and your big brother Ryan.

I want you to know I am praying for you and your family.

Love,
Donna Henderson
Donna Henderson <donnamichele@comcast.net>
Orion, MI - Thursday, April 17, 2008 10:06 PM CDT

Hi Karen,

I see I am in good company signing in after "the other" Donna- that wonderful, amazing Donna Thorell!! :-)

I just wanted you to know that I am thinking of you and Justin tonight. I was reading back in some of your journal entries and realizing just how much Justin sounds like my Craig. It sure would be nice if we could get together someday!

I wish we would be at the Mito conference, but it seems Craig's diagnosis is now leading us in another direction (although the mito is still there, Dr. Parikh thinks, as a secondary issue).

I am saying some prayers tonight that you and Ryan receive all the money you need to go and then some! Ryan sounds like such a fantastic young man. I can understand why you are so very proud of him.

I'm saying prayers for the genetic answers you are looking for, too. I know it is all so scary and confusing.

God bless you and the boys,
Donna
Donna Henderson <donnamichele@comcast.net>
Orion, MI - Thursday, April 17, 2008 10:01 PM CDT

I just want to say thank you for just being who you all are...
much love and many prayers are being sent your way.
Donna Thorell <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Wednesday, April 16, 2008 11:41 PM CDT

Hi Justy Wusty Boy. I am so glad to hear you are doing good or at least better. Have you had any more snow? We keep having snow and sleet and ice pellets. I am so ready for summer. I want it to be warm. I am glad you got to go ride on the fire truck. I bet that was fun. How many Easter eggs did you find? Okay well I will see you later buddy. I love you very much. gramma Evelyn
Evelyn Brubaker <evelyn@2brus.com>
Mulino, Or. u.s.a. - Tuesday, April 1, 2008 0:40 AM CDT

just wanted to come in and say hi!. I have six kids. We live in NJ. Only one has mito.
www.caringbridge.org/visit/babyjulie
we send lots of hugs and thank you for sharing
millie rodriguez <nena1294@aol.com>
hamilton, nj usa - Thursday, March 27, 2008 5:09 AM CDT

This Easter wish from each of us is sent with love to you
Because we think you're special
and you make us happy, too...
That's why we're hoping Easter Day brings lots of happiness your way!

Happy Easter With Love!

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, March 22, 2008 6:16 PM CDT

"Each shamrock brings a wish your way
For a truly bright and lucky day."

Here’s a wish for sunshine
And a heart that’s filled with cheer,
And joys that grow like shamrocks
Through a bright and happy year!
May you find friends in abundance,
May the sun shine bright above you,
May the world be a wonderful place to live,
May you always have someone to love you.

Wishing You the Sweetest
St. Patrick's Day Blessings

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Sunday, March 16, 2008 8:15 PM CDT

Hi Justin, I had a great time with you and your mom at the school carnival the other night. You did so great at throwing the balls and the beanbags! And it was fun watching you and your mom in the cakewalk, too. It was so cool that you won twice! I love you so much and will see you soon! Love, Grandma Mary
Mary Street <lbugstreet@yahoo.com>
Olympia, WA USA - Sunday, March 16, 2008 10:40 AM CDT

Dear Karen,

Just went to check out website after a long time of being too busy with Craig's new diet and everything else to even think about it, and there was your update! Thanks for thinking of us!!

I am with you as your thoughts swim with a more specific diagnosis. I am sorry what you are reading is not looking good. I need to look it up because I know nothing about that form of mito, but I hope you can get some more promising news from mito docs. Internet info is sometimes out-of-date. I sure hope that is the case. And it always helps me to remember that no matter what the research says, we know the One who truly holds the future in his hands. May He bring you comfort, peace and answers.

Love,
Donna
Donna Henderson <donnamichele@comcast.net>
Orion, MI 48359 - Thursday, March 6, 2008 10:44 AM CST

Hello nice to hear from you!! We dont see dr senato untill the 10th.. Cannott wait!! Any sugetions on what to ask?? How is justin this week??? Huggs fromm all of us here.. shawnte treys mommy
shawnte <shawntejensen@aol.com>
puyallup, wa pierce - Thursday, March 6, 2008 1:20 AM CST

Hello wanted to say hello.. My name is shawnte and my son is trey he is two years old.. We are going to be at the summit tomorrow.. My son has mito.. A friend gave me your link.. I hope you and justin all do well.. And lets hope it wont rain :) treys mommy shawnte... Trey has a site under trey jensen
shawnte <shawntejensen@aol.com>
puyallup, wa 98373 - Saturday, March 1, 2008 0:39 AM CST

I think about your family often and will pray for you. ..so crazy how fast kids grow up. I'm so proud of Ryan and how much help he is to all of you. Lova ya, Aunt Bev.
Aunt Bev (Vilhauer) <bvilhauer@comcast.net>
Oregon City, OR USA - Monday, February 25, 2008 11:08 PM CST

Well Ry Bo , I guess you figured it was your turn huh? Just kidding. I hope you are feeling better today. My lap top crashed so i had to have uncle Mike G. help me get my old one set up. I have been without email for a week and it was killing me !. Jodi had her apendix out at 16. Justin did you get to throw a snowball at mom or Ryan?. I bet it was cold outside!! We had a lot of snow too. You listen to mom and no sickies this year. #8 means new begginings and that is what i will be praying for for you guys. Ry you take it easy now you hear. And Justy Boy don't pick on your brother , at least till he gets better. Love yopu all grandmae B.
Evelyn Brubaker <evelyn@2brus.com>
mulino, Or. u.s.a. - Tuesday, February 5, 2008 9:10 AM CST

So sorry to hear that Ryan's appendix "rebelled" on Super Bowl day... I hope everything went smoothly otherwise and you all got to catch the Bowl commercials!
Jackie
Milwaukee, WI - Monday, February 4, 2008 8:55 AM CST

So sorry to hear that Ryan's appendix "rebelled" on Super Bowl day... I hope everything went smoothly otherwise and you all got to catch the Bowl commercials!
Jackie <felidos@wi.rr.com>
Milwaukee, WI - Monday, February 4, 2008 8:55 AM CST

Hello! Thanks for stopping by Abigail's site! Could you please e-mail me the name of the mito doctor you see in Seattle? Thanks! We will be keeping you all in our prayers also! God bless you!
Clarissa <clarissarwest@msn.com>
Yacolt, WA USA - Saturday, February 2, 2008 12:06 AM CST

I am glad you did not have to make a visit to the ER. I hope Justin and Ryan both feel better soon. I'll be praying for you all.

www.caringbridge.org/visit/austinjshaft
Suzanne Shaft
Macedonia, OH - Monday, January 21, 2008 8:12 PM CST

Hi, Justin, Karen and Ryan! Just stopping by to say hello! I'm praying for you all to have a happy and HEALTHY New Year!

Hugs,
Cindy Cruz <rella19@comcast.net>
- Saturday, January 5, 2008 11:45 AM CST

Hi Justy Boy, It was good to have you with us Christmas Eve.Thank you Karen for bringing him down to Oregon for Christmas. I hope you like your spiderman hat and shirt. You sure seemed to like the yo yo your dad got you even if you were a little wild with it. We thought you were going to whack the fish tank with it : ) We had all that food and i felt so bad that you just didn't feel like eating anything we had. You did have a large glass of chocolate milk tho so that was good. We sure do love you. I just love to see you smile and your eyes light up. Love you bunches . grandpa and grandma B.
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Wednesday, December 26, 2007 8:00 PM CST

In the quiet beauty of the snow-covered fields,
in the starlit wonder of the winter sky,
His Majesty is seen.
May all the beauty of this wondrous season
fill your heart with peace and joy.

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Monday, December 24, 2007 12:53 AM CST

MERRY CHRISTMAS and HAPPY HOLIDAYS, May the new year bring Justin amd your family good health.......Sending you hugs....
Christine and Megan
www.caringbridge.org/visit/megangowland
xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxox
christine gowland <christine_gowland@yahoo.ca>
burlington, ont canada - Saturday, December 22, 2007 9:13 PM CST

Hey Justy Boy, It sure was good to see you last week end! How excited you were. It was awesome to see you walk! I loved having you sit on my lap but then you just crashed and slept for 2 hours. All that excitment wore you out.Did you have fun throwing pennies in the fountain at the returant? We are looking forward to see you this Christmas Eve. Stay well okay? Ryan it was good to see you too. You are such a big help with Justin! Love you all Grandma Evelyn
evelyn brubaker <evelyn@2brus.com>
mulino, or. u.s.a. - Saturday, December 22, 2007 1:29 AM CST

Hi! I am new here, but heard of your site from a Mito support website. I have a young son who is in the process of being diagnosed with a mito disorder. That's wonderful news about taking a few steps, Justin! You must have been very happy to see your grandparents! My little guy wasn't up to seeing Santa this year either. That's perfectly understandable. I wish you all a very Merry Christmas!
Suzanne Shaft <SBShaft@aol.com>
Macedonia, OH - Friday, December 21, 2007 4:41 PM CST

Hello,

Sending you some christams cheer and hugs from up North.....Hope you feel better soon big guy.....
christine and Megan
www.caringbridge.org/visit/megangowland

christine gowland <christine_gowland@yahoo.ca>
burlington, on canada - Sunday, December 16, 2007 9:00 AM CST

Dear Justin-
Sorry to hear you are sick. Hope you are getting better now without all the yuckiness.

Praying for you.

HUGS-
Ann Eide <HFMito@cableone.net>
- Monday, December 3, 2007 1:24 PM CST

Hi Justy Boy. Gad you had a great birthday. Did you pick out something fun with the money we sent you for your birthday? What did you get? I am planning on coming up to see you in a week or so. I will let mom know for sure what day. I guess if you are going to school 5 days a week now i will have to wait till Fri. to come. I love and miss you buddy. karen i am praying for all of you and congratulations on a job well done. Grandma Evelyn and grandpa Ed.
evelyn brubaker <evelyn@2brus.com>
mulino, or u.s.a. - Saturday, November 24, 2007 3:44 PM CST

T is for the trust the pilgrims had so many years ago
H is for the harvest the settlers learned to grow
A is for America, the land in which we live
N is for nature and beauty which she gives
K is for kindness, gentle words, thoughtful deeds
S is for smiles, the sunshine everyone needs
G is for gratitude... our blessings big and small
I is for ideas, letting wisdom grow tall
V is for voices, singing, laughing, always caring
I is for Indians, who taught them about sharing
N is for neighbors, across the street, over the sea
G is for God’s blessings at Thanksgiving and always.

I couldn't let the day pass without wishing you a wonderful Thanksgiving. Sending LOTS of LOVE and well wishes your way. May you feel God's Love and His Blessings in all ways! If you are surrounded by people who love you, then you are Blessed!

Love, Hugs and Prayers,

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Thursday, November 22, 2007 9:55 AM CST

Hello. Our son Steve and his family, Jill and Taj, have told us what a courageous and fantastic kid Justin is. And how close and supportive Justin's family is to him and each other. We hope to meet him some day.
Nancy and Ted Eggleston <t.eggleston@comcast.net>
Olympia, Wa USA - Saturday, November 17, 2007 11:01 PM CST

hello,
Just wanted to pop in and say hello to you and your family. WOW 10 years old, I have some renewed hope now......Happy Birthday Justin......
Thanks for popping in us too..on our site...
xoxoxoxoxo from another mito mommy..xoxoxoxoxo
christine gowland and megan
christine gowland <christine_gowland@yahoo.ca>
burlington, ont canada - Thursday, November 8, 2007 7:18 PM CST

Hi Karen and Justin!

Hope your party was loads of fun! Sounds like Mom really went all out!

Craig is 10 years old also. Thank God our boys have made it this far! Every day is a blessing, isn't it?!

Hope Ryan if feeling better. I think of him and wonder how he is doing.

Craig and Dalton are on a shortened school day, and it has done wonders for them both. I hope Justin continues to be able to make it to school more regularly.

God bless,
Donna Henderson
Donna Henderson <donnamichele@comcast.net>
Orion, MI 48359 - Monday, November 5, 2007 1:42 AM CST

Hi Justin!
Your birthday party was a lot of fun! We are glad we got to come and see you turn 10! You are such an awesome kid!
Mr. E, Jill and Taj
Olympia, WA USA - Saturday, November 3, 2007 10:48 PM CDT

Hi, congratulations, Karen, on this fabulous anniversary date! :) WOOHOO! You are awesome and I'm glad you have reached such a great and terrific milestone! Hugs,

Cindy Cruz
- Friday, November 2, 2007 8:37 PM CDT

I saw your site address from angel Alec's site and thought what the heck I'll check it out. Your post from Oct 24th is how I am feeling today, well besides the dog, we don't have one. Justin sounds like a fighter. Its amazing how kids can deal with so much but still have a smile at the end of it all. My son has a rare brain malformation but we all go thought so much no matter what Dia. our kids have. Have a good birthday Justin, my sons birthday is in a couple weeks, he will be 4 and we will be celebrating it at Disney World for our MAW trip. Take Care.
www.caringbridge.com/sd/ryland
Summer mom to Ryland <rylandsmom350@yahoo.com>
Hartford, SD - Friday, November 2, 2007 3:08 PM CDT

Hi Justin! I miss you very much. I can't wait until I can see you again. I am praying for you and your mom. I love you so much. You are a wonderful boy. Love your Aunt Sharon
Sharon Smith <slhensley@verizon.net>
LA GRANDE, OR USA - Monday, October 22, 2007 3:54 PM CDT

Hi Justin !

We just wanted to say "Hello" ! You're such a strong and cute little boy. All to best to you and your family !
Iris and Nina www.ninastraum.de <jophiel@netcologne.de>
Leverkusen, NRW Germany - Saturday, October 20, 2007 9:45 AM CDT

Hi Justy boy. How do you like your new van? I bet that sure makes it easier on all of you. I can't believe you and your cousin Taylor are going to be 10 years old. It doesn't seem possible. I just wanted to say i love you very much.I am praying for you and i am so sorry you have been sick. Tell mom and Ryan i said hi. My love to all of you. Ryan you do such an awesome job with your little brother you should be very proud of yourself. Grandma Evelyn :)
evelyn brubaker <evelyn@2brus.com>
mulino, or u.s.a. - Saturday, October 13, 2007 10:52 AM CDT

Hi, stopping by to check on my friend Justin. Take care and thinking about you. Hope this week went better.
Cindy Cruz
- Friday, October 12, 2007 7:16 PM CDT

Hi Karen,

I am so sorry to hear how sick Justin has been and that he is having seizures everyday. I will be praying for him.
Hang in there and God bless.

Love,
Donna
Donna Henderson <donnamichele@comcast.net>
Orion, MI 48359 - Friday, October 5, 2007 0:28 AM CDT

Hi, Karen and all! I'm sorry to read about the seizures. I sure hope Justin could go through an easy time for a while. I'm so excited to hear about the van! That is awesome! Did you hear about the success of the auction? Awesome, too!
Cindy <rella19@comcast.net>
- Thursday, October 4, 2007 6:22 PM CDT

HI Karen,

Congratulations on the van! I was sure God would answer that prayer and provide for you. What a relief!

Thanks for signing our guest book! Always great to hear from you. I loved seeing Justin's pictures with Jack Black. Did you get more through the UMDF email newsletter? They had a link to pictures of the kids that day. Let me know if you need more info on how to get to them if you didn't.

I'm glad Justin is doing well with school and getting bused now. Anything you can do to give yourself a moment's break is a great thing. Just my opinion, but I think you should go to that retreat. I know you could use the break and don't get a chance for many. The Lord will lead you, I know. Just want you to take care of yourself when you can. I can't imagine doing this as a single Mom.

I'm so sorry to hear about Lois' girl. We were in touch awhile back. Lois is a sweetie. I will pray for them.

Love to you, Justin and Ryan,
Donna and family

Donna Henderson <donnamichele@comcast.net>
Orion, MI 48359 - Thursday, September 13, 2007 11:26 PM CDT

Hi, guys! I am so excited about the van! YEAH! Congrats! Thanks for offering to help, but I think we have the help we need and GO ENJOY! That's what you deserve!

Hugs
Cindy Cruz <rella19@comcast.net>
- Wednesday, September 12, 2007 4:06 PM CDT

Hi, Karen and Justin and Ryan!

Thinking of you guys today and wondering how you're doing. Lots of hugs,
Cindy Cruz <rella19@comcast.net>
Edmonds, WA - Tuesday, September 4, 2007 9:09 PM CDT

Hi Karen & Family,
My Prayers are with you guys. I am sure that God is and will take care of you all. My prayer is that the road you walk down is a bit easier and that you are graced daily with joyful moments and love. Justin is truly an amazing young man. His strength and determination make him an inspoiration to us all. But mostly he has a smile that melts my heart. Justin I hope you are enjoying the visit from your aunt and cousins and I am saying prayers for you every day. I love you. Nancy

Nancy Camacho <Housemother@charter.net>
Klamath Falls, OR US - Friday, August 24, 2007 6:47 PM CDT

HI Karen,

Going to say some specific prayers for that van money and then some! Hang in there. Our Jehovah Jireh will surely provide somehow. He always does. :-)

Love Donna and family www.caringbridge.org/visit/thehendersons
Donna Henderson <donnamichele@comcast.net>
Orion, MI - Tuesday, August 7, 2007 1:09 AM CDT

Hi Karen and Justin!

Thanks so much for visiting our site recently, Karen, and leaving a message. I had been thinking of you and your boys and wanting to get back in touch. I will say some prayers for relief from the heat. Dalton has really been struggling with that, too, so I feel for you. Although, it's probably much hotter where you are even!

I am also asking the Lord to provide the right vehicle for you. I remember going through that with Craig. There was just no way I could keep lifting it in and out after he got his battery- assist chair. Too heavy! And taking it apart each time was not a viable option.

May He bless you above and beyond what you can imagine!

Lots of love,
Donna
www.caringbridge.org/visit/thehendersons

Donna Henderson <donnamichele@comcast.net>
Orion, MI 48359 - Tuesday, July 24, 2007 0:40 AM CDT

Hi Karen! Thanks for sharing your website with us! This is my first time viewing it. It's very cool! Jim said that he could come over and look at your car on Wednesday of this week. Will you be home? If so, can you e-mail him directions? I know how to get to your house but I don't know how to tell him to get there. You should probably send it to his work e-mail address. It's jim@driven2performance.com. I'm so sorry that Children's did not prepare you for what to expect when Justin got his G-J tube. I'm glad he's doing better now. Hopefully I will see you this Thursday! Hang in there and hug Justin for us!
Karen Huggins <huggiejk@msn.com>
Olympia, WA - Monday, July 23, 2007 11:33 PM CDT

Hi Karen, Justin, and Ryan!
Wow, Jack Black; that's awesome that you got to meet him. I hope you're doing better now during the last few days now that it's been raining and cooler. Never thought that rain would be wonderful, but it sure has been too hot for our kids that can't handle it! Take care and hugs to all three of you!
Amy, Austin, and Lily
www.caringbridge.org/visit/lilyann

Amy Drapeau <amyrd@comcast.net>
Puyallup, WA - Wednesday, July 18, 2007 8:56 PM CDT

Hi Karen :) I know,,it's been a while :( Sorry,I haven't been keeping up,with signing guestbooks. I check on y'all all the time,though. I LOVE the new pics !! I hope y'all have a good summer,,give Justin big hugs from his friends in Texas :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 18 ~~Katelyn 15 Bipolar,and OCD ~~ Logan 9 Autism, Mitochondrial myopathy complex II and IV ~~ and Ethan 8,,Severe dyslexia,ADHD,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Saturday, July 14, 2007 2:15 AM CDT

Hi Karen, Justin and family. We are so glad to hear your trip was a success! Remember you're welcome to stop by the fire station anytime.

Your friends at McLane Fire Department
Davie Kindell <dkindell@mclanefire.org>
Olympia, WA usa - Wednesday, July 11, 2007 4:50 PM CDT

Hi, Justin and Karen and Ryan! Just stopping by to see how things are going! I'm glad to hear that you're doing alright! Hugs and Happy 4th!
Cindy Cruz <rella19@verizon.net>
- Wednesday, July 4, 2007 1:07 AM CDT

Hi Justin! Hope you had a super great time on your vacation in California with your Mom, Ryan and Grandma. I can't wait to hear about it. Uncle Denny, Hallee and Missee all send BIG hugs to you...I know little dogs can't hug but they can kiss and ask you to play (which they would!!!)
Take care of your mommy and Ryan. We love you so very much sweetie!
Aunt Lauri
Lauri Baker <lauri.baker@comcast.net>
West Linn, OR United States - Tuesday, July 3, 2007 0:02 AM CDT

Hi Karen,

Here's wishing you a Mother's Day
That's filled with every pleasure,
And a future that's as happy
As the memories you treasure!

God sends children for another purpose than merely to keep up the race - to enlarge our hearts, to make us unselfish, and full of kindly sympathies and affections.

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, May 13, 2007 12:04 AM CDT

Hi Karen, Justin, and Ryan:
Hope you're all doing well and I hope Justin is doing better this week. I think about you a lot although I'm not good at staying in touch! Hugs to everyone!
Love,
Amy, Austin, and Lily

Amy <amyrd@comcast.net>
Puyallup, WA USA - Friday, May 11, 2007 9:22 PM CDT

http://insieme_per_azzurra.blog.tiscali.it/cd3140168/

guardi il programma televisivo e se vuole informazioni mi scriva cristinaerbavoglio@virgilio.it
it watches the television program and if it wants information it writes to me
http://www.ihausa.org/video/montel.html

cristina mascagni <cristinaerbavoglio@virgilio.it>
livorno, italia - Saturday, April 28, 2007 6:54 AM CDT

Hi Justin-
So glad you didn't hurt yourself too terribly bad. Ouchie though! Hope you are having a wonderful time at your aunt's house for vacation. It sounds like a lot of fun. Hope your seizures stay away and you are feeling better from being sick.

HUGS-

AnnEide <HFMito@cableone.net>
- Tuesday, April 10, 2007 8:58 PM CDT

Hi Justy Wusty Boy!!!! I had such a good time seeing you in January. I am sure glad i got to come. I am so sorry you got so sick on Friday and had to spend the whole time in the hospital. I felt so bad for you throwing up all the way to Seattle and the whole day. You are a real little trooper. You big brother and mom take such good care of you and love you so much. You are a fournate boy to have so may people who love you.I love your smiles and giggles. And i love that you let me call you Justy Wusty Boy again. I love you very much. We pray for you often and even our pastor asks about you and prayes for you. Take care of mom for me and give her a hug. Just between you and me i think she could use one : ) love you bunches ,grama Evelyn
Evelyn Brubaker <edev@dslnorrthwest.net>
Oregon City, Or usa - Sunday, April 1, 2007 5:03 PM CDT

Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Wednesday, February 14, 2007 1:02 PM CST

Hi, Karen, Justin and Ryan!

Just thinking of you and wondering how the appointments went.

Hugs,

Cindy Cruz
- Wednesday, January 24, 2007 8:12 PM CST

Hello! It's been a long time since we've chatted. I hope all is better for you now. I had no idea what a difficult month it's been; I'm so sorry it's been so hard. Think positive thoughts and it'll get better! Our thoughts are with all of you! Take care.
Amy, mom to Austin and Lily <amyrd@comcast.net>
Tacoma, WA USA - Tuesday, January 23, 2007 10:19 PM CST

Hey Justin , it's grandma Evelyn. Just wanted to say hi to you and mom tells me you liked your spiderman presants. I'm glad. I am looking forward to seeing you this week if this snow ever stops. Right now it is snowing very hard here!You should see Molly she likes to run and jump and try to catch the snowflakes in her mouth. Well if all goes well i will see you on Thursday. If the roads are clear i will be there! Ilove you justin. grama evelyn
Evelyn Brubaker <edev@dslnorthwest.net>
Oregon City, Or. u.s.a. - Tuesday, January 16, 2007 11:26 AM CST

Hi Karen,,,just checking in on y'all. I hope things have settled down for you. I really really hope you can figure out how to change the pics ! I would love to see how much Justin has changed ! Maybe you could ask MaryBeth,,,she changes Alex's often.
Hope this new year brings great things,for y'all. Even though I don't sign very often,,you are always in my thoughts and prayers :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 17 ~~Katelyn 14 Bipolar,and OCD ~~ Logan 9 Autism, Mitochondrial myopathy complex II and IV ~~ and Ethan 7,,Severe dyslexia,ADHD, neuromuscular scoliosis,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Sunday, January 7, 2007 10:28 AM CST

Hope that yall had a wonderful Christmas and wanted to wish yall a happy new year. God bless yall and keep yall.
Sandra Kilpatrick <kilpatrickfamily@earthlink.net caringbridge.org/fl/joshuakilpatrick>
Leesburg , FL - Tuesday, December 26, 2006 12:56 AM CST

Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Sunday, December 24, 2006 7:43 PM CST

May your Christmas dreams… …always be filled with magic!
Merry Christmas

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, December 24, 2006 9:23 AM CST

Justin, Grand pa and grandma Brubaker love you very much. I hope you enjoyed the winding sucker and the duck shirt for you birthday. I mailed off you christmas presants today they should be there for Christmas. Sounds like you better keep and eye out for those walls that keep jumping out in front of you. You have a great Christmas with mom and Ryan. love grand pa and grandma B.
Evelyn Brubaker <edev@dslnorthwest.net>
Oregon City, Or. usa - Tuesday, December 19, 2006 0:00 AM CST

We love you Justin. You are a wonderful nephew and cousin. We all miss you very much. Hopefully we will see you in a couple of months. Tell sparky hi from us. I am so proud of you. You are an amazing boy. Love ya lots, Aunt Sharon, cousins, Alec, Matayah, and Caleb
Sharon Hensley <slhensley@verizon.net>
La Grande, OR USA - Sunday, December 3, 2006 2:07 PM CST

Justin, you are a wonderful boy and I am so blessed that you are my grandson. We had such a great time yesterday on Thanksgiving! It was good to see you eating so well. And it was cute the way Sparky sat by your chair eating any food that dropped. :-) Love you, Grandma Mary.
Mary Street <lbugstreet@yahoo.com>
Tumwater, WA USA - Friday, November 24, 2006 9:42 PM CST

Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Wednesday, November 22, 2006 7:04 PM CST

Hi Justin
My name is Jenna and I came across your site. You are such an amazing boy and I am sure your mom is very proud of you. You are a fighter and an inspiration. you are in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Sunday, November 19, 2006 11:40 PM CST

OMG !! I can't believe I missed Justin's Birthday !! I'm so sorry. My mind is going 90 to nothing lately,,and I haven't been checking on our CB friends ! I hope y'all had a great day :)
How is Justin doing with his g-tube ? Has he gained weight ? We're still struggling with both boys weight. Ughh,,its so frustrating.
Anyway,,,tell Justin that some crazy lady in Texas says Happy late Birthday :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 17 ~~Katelyn 14 Bipolar,and OCD ~~ Logan 9 Autism, Mitochondrial myopathy complex II and IV ~~ and Ethan 7,,Severe dyslexia,ADHD, neuromuscular scoliosis,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Sunday, November 19, 2006 1:59 AM CST

HAPPY HALLOWEEN!!
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Monday, October 30, 2006 1:28 PM CST

Hope the neuro appt went well.. glad to hear the Gtube is working out well for you guys, I have noticed alot of mito parents have the same reaction (utter relief) when they have the tube put in... Brandons GI issues have never been bad enough to affect his eating much, but i do know the stress of wanting to be sure they get what they need!

Hope all is well!

Keely
www.caringbridge.org/visit/brandonandtyler
Keely <tig_ger51@hotmail.com>
Canada - Wednesday, October 18, 2006 8:39 PM CDT

Praying for Justin and his seizures...I do hope and pray that the neuro will be able to give some helpful advice.

HUGS
Ann <AnnEide@cableone.net>
- Wednesday, October 4, 2006 11:37 PM CDT

Hi Karen,,,,I'm finally coming out of my Big Brother induced stupor !! Well,,not really,,cause I'm still reading the websites,,looking for some updates on the whole Will/Janelle love affair,,,but at least I'm not up all night watching the live feeds. Whew,,,they really got me good this year ! Anyway,,I was just dropping in to see how Justin is doing. I hope things are going well,,with school and everything. Talk to you later .

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 17 ~~Katelyn 14 Bipolar,and OCD ~~ Logan 9 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 7,,Severe dyslexia,ADHD,CAPD, neuromuscular scoliosis,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Monday, September 18, 2006 10:52 AM CDT

Justin-
So glad you had a blast camping! I've only been camping a couple of times, but I imagine you had way better fun!

Karen-
I hope the appt is soon in Tacoma or wherever they send Justin and they are able to help him. I'm updating the website, so I'll make special mention in the prayer request page.

Have a safe holiday weekend!

HUGS
Ann Eide (www.heartbeatsformito.org) <HFMito@cableone.net>
- Sunday, September 3, 2006 2:42 AM CDT

Karen,
I knew we were friends for a reason !! Yep,,,I'm a Janelle fan ALL THE WAY !! I have also been won over,by Dr. Will,thanks to the live feeds :) Of course,,,if he is just playing Janelle,,then I will have to cross him off my Christmas list :)
How is Justin doing ? Has school started there ? Is he able to walk much,at school,,or does he take a wheelchair ?
Hope things are going good :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 17 ~~Katelyn 14 Bipolar,and OCD ~~ Logan 9 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 7,,Severe dyslexia,ADHD,CAPD, neuromuscular scoliosis,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Saturday, August 26, 2006 2:14 AM CDT

I'm so sorry to read that Justin is having a hard time lately . It makes me sad to hear that he is having problems walking. This disease sucks !! I just want you to know that y'all are in my prayers .

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 17 ~~Katelyn 14 Bipolar,and OCD ~~ Logan 9 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 7,,Severe dyslexia,ADHD,CAPD, neuromuscular scoliosis,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Monday, August 14, 2006 3:01 AM CDT

Just checking in to see how things are going. As always, you remain in our prayers.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Sunday, August 6, 2006 9:24 PM CDT

Hey Karen,,,,I hope y'all have fun camping. You are BRAVE !! The only "camping" we have done,,involved a cabin,,that had a bathroom,and a kitchen :) Not exactly "roughing it " huh ? Oh well,,the boys thought it was cool. I'm sure y'all will have a blast . BTW,,if my husband ever manages to get released,from the Dr,to go back to work,and we manage to save some money,,we might actually get to meet . My Mom lives about 5 hours from you,in Walla Walla,,,so one of these days,,we are going to come up there. Of course,those are a lot of very big ifs,,,but a girls can dream,right ?

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 17 ~~Katelyn 14 Bipolar,and OCD ~~ Logan 9 Mitochondrial myopathy Complex II and IV, Autism,and JRA ~~ and Ethan 7,,Severe dyslexia,ADHD,CAPD,neuromuscular scoliosis and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Friday, July 28, 2006 3:46 AM CDT

thanks Karen for sharing yours and Justins life and with everyone.
Ada
Lacey, Washington USA - Monday, July 17, 2006 9:46 PM CDT

Karen, sending lots of prayers your way. I hope the eeg gives you answers. Hailee goes in for a five day video eeg first week of aug im not looking foward to that.

Melissa
http://www.caringbridge.org/az/hailee
melissa <angelS4hailee@cox.net>
- Monday, July 17, 2006 1:49 PM CDT

Hi there Mister Justin Boy, I am so glad your mom emailed me with your new address and web site because I lost your web site. I love to read it and check up on you. Love the pictures of you. I am glad you had fun with the dolfins. Wouldn't that be fun to have one as a pet? You could ride it in the water. I pray you are doing better with your feeding tube. It sure is better then having to take all that medicine isn't it. We love you Justy boy and we are praying for you and mom and Ryan. Karen you know where to look to for your strength. Welove you all grama and granpa Brubaker
Evelyn Brubaker <edev@dslnorthwest.net>
Oregon City, Or usa - Sunday, July 16, 2006 11:44 PM CDT

Hi Karen and Justin,

THank you so much for stopping by my CB site and leaving a message in the guestbook. That was very kind of you!!

I am glad that Justin's J tube is working out well for him. I had one for 7 months but I was in excruiating pain everyday. They put in different J tubes 5 times but it didn't help at all. So I finally pulled my own J tube in April 2006. I was 73lbs before starting on TPN and getting my J tube. I am now (almost a year later) 98 lbs. I hope that Justin is gaining weight with his new tube.

Tell Justin I wish I could have a pet dolphin too!! I love dolphins, well I actually love all animals!! At one time we had 8 Old English Mastiffs that shared our home!!

I will keep you and your family in my thoughts and prayers. Thanks for visiting me!! God Bless you
Hugs,
Ann-Marie McDonald
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
Palmerton, Pa. - Saturday, July 15, 2006 10:06 PM CDT

Hello! Just wanted to stop by and say Hi~ looks like you had a great time seeing Mickey! Keeping you and your family in our thoughts and prayers. Your new friend Katie and Alex
www.caringbridge.org/visit/alexanderlindemann
Katie <skl304@verizon.net>
Easton, PA USA - Tuesday, July 11, 2006 3:53 PM CDT

Girl,,,you have GOT to update !!! Stop unpacking,,put the boxes down,,,,they will still be there tomorrow !! LOL,,just kidding,,I hope y'all are settling into your new place,and loving it. Update,,whenever you get the chance :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 17 ~~Katelyn 14 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 7,,Severe dyslexia,ADHD,CAPD, neuromuscular scoliosis,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Friday, July 7, 2006 0:51 AM CDT

Hello Justin and family, So happy to hear that all is going well and that Justin is gaining weight. You will really like the Mickey button, less mess!Sounds as if you have your hands full right now. I pray that you will have a smooth move and that all will go well. Take care and God bless.
Sandra Kilpatrick <kilpatrickfamily@earthlink.net www.caringbridge.org/fl/joshuakilpatrick>
leesburg, fl - Wednesday, June 28, 2006 12:49 AM CDT

Hi Karen, Justin, and Ryan!! Glad to hear that the feeding tube is going good. YIPPEE for the weight gain! Hope you enjoy your new place; don't work too hard moving! Talk to you soon...
Amy, mother of Austin and Lily (www.caringbridge.org/visit/lilyann) <amyrd@comcast.net>
Puyallup, WA USA - Monday, June 19, 2006 5:03 PM CDT

Hello,
thanks for visiting our caringbridge site. I will send up prayers for you and your family. The pictures are great!I'll stop in to check on you all again.
Sheryl&Trinity
sheryl sumlin <sherylsuml@yahoo.com>
atlanta, ga usa - Tuesday, May 30, 2006 1:44 PM CDT

I'm so sorry I haven't stopping in and checked on y'all !! I read your posts on the mito group,,and think of you often,,,but I don't have this site bookmarked on our new computer.(We got a second computer at Christmas,,and I usually use the new one) Anyway,,to make a long story short,,,I am basically too lazy to come in this room,to get on the computer,,,so I haven't been checking on all of my caringbridge friends ! I hope Justin is doing better,,with his tube. I saw a friend,on Sunday, that I haven't seen in a while. Her son had just gotten his tube,the last time I saw them,,,and he has gained 25 lbs,since then !! I couldn't believe how good he looked ! So,,I started thinking about Justin,,and just wanted to tell you that story. I know this is very rambly,,,,we have been to see Dr's almost everyday this week,,,and I think my brain is fried !

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 7,,Severe dyslexia,ADHD,CAPD, neuromuscular scoliosis,and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Thursday, May 25, 2006 1:08 AM CDT

Hope things are better for Justin with his tube. I have heard there is discomfort in the beginning with some, but ?I know there is a virus spreading around. If the fever persists, contact your dr...
My son William has the stomach virus now with a fever, chills, diarrhea and a really bad cold and cough. So please take good care of Justin and hope he gets adjusted to his PEG tube soon.

Best Wishes-
Ann (www.heartbeatsformito.org) <HFMito@cableone.net>
- Wednesday, May 24, 2006 3:19 AM CDT

Checking in to see how Justin did through his surgery. I have been praying for him and you continue to be in my thoughts.

Best Wishes-
Ann (www.heartbeatsformito.org) <HFMito@cableone.net>
- Friday, May 19, 2006 6:04 PM CDT

I will be thinking of Justin & sending prayers for his G-tube procedure Friday.Wanted you to know I have been thinking of you & your son.
Take Care
Lori
- Wednesday, May 17, 2006 11:02 PM CDT

I wanted to thank you for visting Madison's site and signing her guestbook. We are new to caringbridge and love to hear from others! I hope the zonagran works out well. Seizure meds are very scary and frustrating! I will keep checking your journal for updates on Justin. Take care~ Kim & Madison

www.caringbridge.org/visit/madisonbarrow
Kim <mkbarrow@verizon.net>
- Friday, April 28, 2006 9:36 AM CDT

So sorry that you are all sick & Justin has such a terrible earache.Those are no fun.I know that you have had alot of overwhelming issues to deal with & have been thinking of you.I have alot going on with my daughter too.
Talk Soon
Lori
- Friday, April 28, 2006 8:03 AM CDT

Wanted to stop by and say hi! Thanks so much for visiting our caringbridge site. It is hard to learn that you child and yourself may have mito or other problems so it means a lot to be a part of a "family" that understands! In Him, Stormy www.caringbridge.org/visit/pray4us-johnsonfamily
Stormy Johnson <imstormy@bellsouth.net>
McDonough, GA USA - Saturday, April 22, 2006 8:21 AM CDT

Just wanting to wish you a Happy Day! May your Easter be joyous-filled with laughter, mirth, humor and a celebration of all life's zillion tiny, amazing gifts of unexpected beauty and intricate detail that puts us in awe of the Creator of it all. May your souls be refreshed and you hearts glad to be alive. Easter Blessings,
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Saturday, April 15, 2006 9:56 AM CDT

Hi.I have been meaning to sign the guestbook ,but it has been a hard week.I wanted you to know I was thinking about Justin & yourself.Glad to hear they are bypassing the NG-tube & going for the G-tube.You have deliberated for a long time & it seems the natural next step.Just wanted to send words of support .Take Care.

Lori
- Thursday, April 13, 2006 4:49 PM CDT

Karen, i know how much you have been struggling with the g tube, im glad you dont have to go thru the ng tube, but still consider the g tube... remember he dosnt always eat fine, and when you have days where he misses a meal or too its so important that our kiddos get there nutriton one missed meal can really hurt them. Its also a saving grace when they are sick and you cant push fluids cause they dont want to drink just put gatorade down the tube...

We love you guys.
Melissa and hailee
http://www.caringbridge.org/az/hailee
ps love the new picts and have a wonderful easter
melissa <angels4hailee@Cox.net>
caveCreek, AZ United States - Thursday, April 13, 2006 3:27 PM CDT

Hey,,,just dropping in to see how Justin is doing. I check on y'all alot,,,but never sign the book. How did the eye appt. go ? Did Justin cooperate ? Whew,,,I hope it was nothing like Logan's last attempt at an exam :) Talk to you later,,,good luck with the G tube,,,,I sure hope we don't have to go that route. I guess,if we do,,I know who to call,for advice,huh ?

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Mitochondrial myopathy Complex II and IV, Autism,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,neuromuscular scoliosis and mitochondrial myopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Thursday, April 13, 2006 1:04 AM CDT

Hi Justin-
I am so sorry you have been in the hospital and being all sick! My goodness, that isn't any fun when you are ill and aren't feeling good. It seems alot of kids are getting sick with a virus, ending up with symptoms similiar to yours.

I hope you feel better real soon.

HUGS
Ann(www.heartbeatsformito.org) <HFMito@cableone.net>
- Thursday, March 30, 2006 1:12 AM CST

Just stopping by and sending prayers...
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
LOUISVILLE, KY USA - Sunday, March 26, 2006 2:34 PM CST

Just wanted you to know that we are praying for you. I hope you are able to start eating and drinking soon so you can get back home!!
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
LOUISVILLE, KY USA - Tuesday, March 21, 2006 7:01 PM CST

PRAYER BEARS WEBSITE

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, March 15, 2006 6:18 PM CST

G'day Justin, may name is Jay from Australia. You mum came to visit me and of course I will come to visit you. I like to visit all sick kids and give them a bit of cheer. I dont have what you do, I have Neuroblastoma which is cancer - but it don't have me. I know times get real tough when your sick and what gets me through which I will send lots of to you is STENGTH-COURAGE-DETERMINATION-HOPE AND INSPIRATION to fight the fight and never give up. Tell your mum to always be strong and positive coz giving up is NOT AN OPTION. Another thing that keeps me going is to always have a BIG SMILE ON THE DILE (face) a smile is worth a lot and you make the most of everyday and treasure every moment. HEY Dolphins are a big part of mine and my darlsy mums life. Having cancer has taught me alot, and I live my life to the full not matter how tough it is. I also send you a BIG BIG BIG BIG BIG KOALA HUG from the land down under and me (Jay)

www.caringbridge.org/visit/Jay

JAYS JOURNEY
MELBOURNE, Victoria AUSTRALIA (THE LAND DOWN UNDER) - Wednesday, March 15, 2006 2:05 AM CST

Hi, Karen, just stopping in to check on you and Justin. Glad to hear things are looking up. Thinking of you...
Cindy Cruz (from mito list)
- Friday, March 10, 2006 7:42 PM CST

Karen,

I saw at the UMDF site that they have some scholarship money to go to the conference in Atlanta. Maybe you could look into that for help getting you there?
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
LOUISVILLE, ky USA - Thursday, February 23, 2006 7:25 PM CST

I found your site from another . I know sometimes we feel like giving up ,it is just too much of a physical and emotional battle to fight on a daily basis . Are there any services in your area that can provide respite services or a nurse aid to help you out ? Just some thoughts of the top of my head . I will pray for you to have the strength , endurance, and patience neccesary to make it. Take it one day at a time . (((HUGS)))

Eli & Fletcher
Michele Gist
W-S, NC - Sunday, February 19, 2006 9:03 AM CST

Karen,
Hang in there! I know it's tough right now but you are doing great. It only seems like there is no light at the end of the tunnel. Please know you're not alone!! You and Justin are always in my prayers.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
LOUISVILLE, ky USA - Friday, February 17, 2006 3:32 PM CST

Just found your page from another and wanted to say Hi.

Holly
www.caringbridge.org/mi/mayam
- Tuesday, February 14, 2006 3:22 PM CST

I am so sorry to hear that you are under the weather, you are in our thoughts and prayers. Thanks so much for signing our guestbook, what a nice suprise to see you after such a long time, we will keep in better touch !
Sandra Kilpatrick and Joshua too! <kilpatrickfamily@earthlink.net www.caringbridge.org/fl/joshuakilpatrick>
leesburg, fl - Thursday, February 9, 2006 5:18 PM CST

Hi Justin! I love your website and love the picture of you! Hope you have a terrific week.

Love,
Leslie
Leslie Merta
DuPont, WA USA - Monday, January 30, 2006 9:41 PM CST

hi justin, we were just stopping by to see if any more updates.. praying no more seizures.. you and hailee both...
we love you
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@Cox.net>
cavecreek, az usa - Monday, January 16, 2006 9:22 PM CST

Hi Justin, I hear you are getting to be a good swimmer! That is good news! I am very proud of you! Love, Grandma Mary
Mary Street <lbugstreet@yahoo.com>
Tumwater, WA USA - Sunday, January 15, 2006 12:02 AM CST

Hi Justin and Karen, thank you for the prayers and support. we are home..

Justin so sorry you are having issues with your seizures to, what is up with you and hailee.

Karen, how funny i call hailee my snugle bug, she is so snuggly i just love it...
have a wonderful week
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@Cox.net>
cavecreek, az usa - Thursday, January 12, 2006 5:43 PM CST

Congrats Justin. You have just been added to our Heartbeats For Mito website. Sending you hugs, smiles and giggles!

Best Wishes-
AnnEide(www.heartbeatsformito.org) <HFMito@cableone.net>
- Tuesday, January 3, 2006 0:31 AM CST

OK,,,come out of hiding !I know you're back,from your wish trip,,and I want to hear ALL the details ! Hope y'all had a lot of fun. Email me,when you get a chance :)

Just 9 more days till our wish trip :)
www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,and possible mitochondrial encephalomyopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Saturday, December 24, 2005 1:13 PM CST

Just 2 more days !!!! I bet y'all are so excited ! I can't wait to hear how much fun you have :) Take lots of pictures.

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,and possible mitochondrial encephalomyopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Thursday, December 15, 2005 0:46 AM CST

Hey NO FAIR !! We want snow !!!! It usually only snows one day,out of the year,here,,and even then,,it is like 1 inch or something.If we are ever rich (HA HA) then we are going to go to my mom's house,in the winter,one year. (She lives in Washington state,,so maybe we can meet y'all then.) Hope Justin has fun in the snow,,,and at Disney :)Only 13 more days :) :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,and possible mitochondrial encephalomyopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Sunday, December 4, 2005 5:52 PM CST

Dear Justin,
I found your cb site from Eli's site. I will be adding your name to our Heartbeats For Mito prayer list. I hope you get to feeling better soon. Tell your mom it would be an honor to add your pic to our website at www.heartbeatsformito.org . Just send me an email, and I'll to the rest.

Praying for you.
Best Wishes-
Ann Eide <HFMito@cableone.net>
- Sunday, November 27, 2005 2:11 PM CST

From My family to yours, may you have a blessed thanksgiving

And make sure to leave room for pie.... we love you...
melissa and
hailee

melissa <angels4hailee@cox.net>
cavecreek, az usa - Tuesday, November 22, 2005 6:11 PM CST

I didn't know it was your birthday last week til I checked your web site. Our grand baby, Xander's birthday was the 4th. He was one year old. I miss seeing you. As you know you are a very special boy to Uncle Steve and I. Please know that we love you.
Auntie Bev <bvilhauer@comcast.net>
Oregon City, OR USA - Monday, November 14, 2005 7:21 PM CST

Happy Birthday Justin !! Logan is also 8,,but it seems like he was a baby just yesterday :( They grow up way too fast. I'm glad to hear that the party went good,,even though he had to pay for it the next day. When that happens to Logan,he says it is all worth it,to have the fun. I'm glad the casting is over,for y'all. That sounded terrible !! I hope y'all have fun on your Make a Wish,,,sure wish we were going at the same time. Maybe we will meet up some other time. Tell Justin that Logan and Ethan say a big HOWDY,from Texas.

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,and possible mitochondrial encephalomyopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Sunday, November 13, 2005 4:01 PM CST

The Prayer Bearshave a safe and happy halloween
hailee
sorry about the casting... i had to do a full body cast when i was 13 i hated it..
melissa <angels4hailee@cox.net>
cavecreek, az usa - Monday, October 31, 2005 4:23 PM CST

Karen,
Thank you for updating :) I have been wondering how the casting was going,,,sounds painful. Hey Justin,,Logan is going to be Spiderman,also ! We will have to share pictures :) Y'all have a great weekend.

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,and possible mitochondrial encephalomyopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Saturday, October 29, 2005 12:38 AM CDT

Girl,,,you need to update !! I am wondering how Justin is doing. Are y'all still doing the casting ? How is the Make a Wish coming along ? We had our meeting,,and are now trying to decide on the best time to go. Hope y'all are doing good :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,and possible mitochondrial encephalomyopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Wednesday, October 26, 2005 9:48 AM CDT

Hi Karen & Justin! Just wanted to stop by and check in. I'm so sorry Justin has that awful blister making the casting worse than it had to be. Hopefully once it's healed you can finish without anymore trauma to anyone! You are always in my prayers.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Friday, October 7, 2005 6:47 PM CDT

Hi Karen,
You have been such a great help and encouragement to me,,as I adjust to Logan's new dx. I showed Logan this website,,and he loved the Spiderman :) I hope the casting goes well. Tell Justin that Logan says Hi :)

www.caringbridge.org/visit/loganandethansmith
Kim mom to Meaghan 16 ~~Katelyn 13 Bipolar,and OCD ~~ Logan 8 Autism, Mitochondrial myopathy complex II and IV,and JRA ~~ and Ethan 6,,Severe dyslexia,ADHD,CAPD,and possible mitochondrial encephalomyopathy <berlydawn4kids@yahoo.com>
Denton, Tx USA - Friday, September 30, 2005 0:51 AM CDT

Hi Karen. I saw the link in the email you sent me w/Justin's photo for the Guild poster so I wanted to say hi.
Ashley Farrington (Mito Research Guild, Edmonds) <a.farrington2@verizon.net>
- Sunday, September 25, 2005 2:33 PM CDT

Hi justin,,, just stopping by to see how your doing... have fun in school.. what grade ar e you in?

Karen hold in there..
Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@cox.net>
- Wednesday, September 14, 2005 4:38 PM CDT

Justin, You do not know me but I'm an OLD friend of your mothers. You are such a cool lookn' dude (that's better than cute eh?) I wish you didn't have to go through what you are right now but if you are your mothers child I'm sure you'll have more than enough strengh and power to kick butt over any obsticles that come your way stay cool and pray as we all do
Richard Avila <sydconst@yahoo.com>
denver, co - Wednesday, September 14, 2005 10:45 AM CDT

Hi Karen & Justin! Sophie and I were stopping by to see pics and say hello. Glad Justin has been doing well. He is absolutely adorable. We'll keep you in our prayers. We'll check back soon.
Meagan & Sophie www.carginbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Monday, September 5, 2005 6:47 PM CDT

Hi Justin, Karen,&Ryan;
I just loved your website. What a great picture of Justy!!! I especially liked the pictures of Spiderman. I'm so glad that you had such a good time on your camp[ing trip.
Nancy Camacho <housmother@charter.net>
Klamath Falls, OR USA - Tuesday, August 23, 2005 5:46 PM CDT

Hi from Stacey and Sheldon. Sheldon loved the pictures of Justin, he waved hi to him. Glad to hear that you had fun camping. Hope school goes well this year.
Stacey Fleming <flemings.cb@genium.com>
Malta, NY - Friday, August 19, 2005 12:19 AM CDT

Did you have fun camping....I wish hailee could go camping...

Karen, thanks for the prayers for hailee and i...

hailee

melissa <angels4hailee@cox.net>
cavecreek, az usa - Monday, August 15, 2005 5:10 PM CDT

Hi Justin! I am so glad you got to go camping and to the beach too! I heard you had a lot of fun and got to spend a lot of time with your dad, and your mom & big brother Ryan too. I'll bet Sparky had a good time. Can't wait to see you today! Love, Grandma Mary.
Mary Street <lbugstreet@yahoo.com>
Tumwater, WA USA - Sunday, August 14, 2005 9:53 AM CDT

Hey It is great to meet you Justin. Wow you are a really cool guy. I will pray your sizures or Yuckies as I like to call them slow down a litte with the new med.

God Bless

Eli’s Angels is a non-profit for children affected with Mitochondrial or metabolic illnesses

Elijah's Page

Ann <akurtz1974@msn.com>
Brighton, Co USA - Thursday, August 11, 2005 1:29 AM CDT

Hi, Karen and Justin! Just thinking about you guys! Hope you're having fun!
Cindy <rella19@verizon.net>
- Wednesday, August 3, 2005 8:34 PM CDT

Hi Justin, Aunt Lauri and Uncle Denny just want to let you know that we are thinking of you every day and love you very very much. Take care of your mommy, Ryan and Grandma for me, OK?
We love you sssooooo much!!!
Oh, Hallee and Missie loves you too. When you come see us the next time, Missie wants you to throw her bone for her. OK?
Lauri Baker <lauri.baker@comcast.net>
Clackamas, OR United States - Wednesday, August 3, 2005 3:12 PM CDT

Hi Karen and Justin,

You have a great CaringBridge site! Hope you are having a good summer.

Anna Toberman
Arlington Heights, IL United States - Saturday, July 30, 2005 3:15 PM CDT

Hi justin Boy[justy wusty boy] I love the nick name but I know you like JUST JUSTIN! so okay grama will try to stick with Justin. We are glad you are doing better. Molly misses giving you all those slobbery kisses. Now she trys to give grama kisses! SHe is such a DOG!! Simba and Molly both say hi and they miss you.
Karen hope you are doing good. WE are praying for the strength to take each day as it comes. God will provide what you need when you need it. I know you know that. We love you guys. You too Ryan. You do a great job helping mom with your little brother. grama and grampa Brubaker.
Ed and Evelyn Brubaker <edev@dslnorthwest.net>
Oregon City, Oregon. usa - Friday, July 29, 2005 8:02 PM CDT

Dear Karen and Justy Boy: Hi from your Great Aunt Elaine and your Great Uncle Joe in sunny Page, AZ. Love your smiling face on your website. Do remember snuggling and hugging with you when you were so tiny. We will be praying for you as you travel this road together. May God hold you both in the palm of his hand.
Joe and Elaine Roth <floro@pageamerica.net>
Page, AZ USA - Sunday, July 17, 2005 10:55 PM CDT

Justin that was so smart of you to ask for a basket for your walker.. i forgot with hailees, now i have to remember on monday to call and check on that...

Karen, how are you doing? its so nice talking with you on the phone the other day and helping you...

love Melissa and Hailee
princess hailee
melissa <angels4hailee@aol.com>
cavecreek, az usa - Sunday, July 17, 2005 6:44 PM CDT

Hey Karen & Justin, I love your website. Karen, you have done a great job! I'm very impressed! Justin, I am very proud of you for all the writing and spelling you have been doing! You are getting so big! I love you and can't wait to see you maybe later today or tomorrow. Tiger and Sassy say 'woof' and 'meow' too, and wonder if you are going to bring Sparky over to play again soon. Love, Grandma Mary
Mary Street <lbugstreet@yahoo.com>
Tumwater, WA USA - Saturday, July 16, 2005 11:15 AM CDT

Our prayers are with you, Justin. I am Brian, his second cousin I believe. I have never been able to see Justin before so it's nice to see what he looks like now. He looks very happy in his picure. Now that I am back from Korea, I hope to see him in person some day soon.
Brian D Brubaker <badtothebru@aol.com>
Travis AFB, CA USA - Saturday, July 16, 2005 2:22 AM CDT

Karen & Justin,

Sophie and I just wanted to stop by and say hello. I love the pictures! I hope the docs can find something to help with the seizures and that his sinus infections will leave soon. Always praying for you.
Meagan & Sophie www.carginbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Friday, July 15, 2005 7:09 PM CDT

Justin, I dedicate this to you and when you are able to read you can go back a read this all for yourself and see all the people who love you. I love you sooooo much and I adoe your smile! Love, Mom
Karen aka mom <karenbrbkr@yahoo.com>
olympia, wa usa - Friday, July 15, 2005 2:09 PM CDT

Dear Justin and Karen: Hi, hope today is going a bit better than yesterday did! Hey, Justin, how's my chocolate loving friend. I so enjoyed our time together on Sunday! Have a nice day! Nice graphics, Karen, yeah!
Cindy Cruz <rella19@verizon.net>
Edmonds, WA USA - Thursday, July 14, 2005 8:54 PM CDT

Karen,I'm glad you were able to figure out how to do the pics.Great picture on the front we had a blast when we went to California Adventure.I'll be checking in on you all more.God bless,love&hugs,Linn&Daniel

The Marrero's <linngilbert7@earthlink.net>
port orchard, wa USA - Thursday, July 14, 2005 8:10 PM CDT

Hello Karen and Justin. What a great idea to have a webpage for Justin. WE have not seen you guys for a long time but we think and pray for you often. Great Uncle Dan and myself Great Aunt Loreta are glad to be able to keep in touch with you now. Have a wonderful day. Love, Dan and Loreta Brubaker
Dan and Loreta Brubaker <brubakerdl@juno.com>
Woodburn, Or USA - Thursday, July 14, 2005 6:41 PM CDT

It is so nice to see your website and see all the people who love you and care about. I hope to see you soon. Please take care.
Marie and Bill Yates <yates4797@msn.com>
Dallas, OR - Thursday, July 14, 2005 12:30 AM CDT

Good morning Karen and Justin! Karen, what a wonderful idea to have a website and I am very impressed that you created it all by yourself!!!!!
Justin, Aunt Lauri and Uncle Denny wish you a very happy day. Are you still writing your name and Ella's? Keep it up! Oh, Hallee and Missi says "bark, bark, bark" too.
I miss you and love you very, very much, Aunt Lauri
Lauri Baker <lauri.baker@comcast.net>
Clackamas, OR United States - Thursday, July 14, 2005 12:18 AM CDT

Justin, grandma and grandpa B. love you very much!!! We are praying for you to have good days. We love your hugs. You are a very sweet boy. We had fun with you while mom was gone to learn more about mito. Love Grama and granpa. Karen LOVE the site. So glad you are doing this. Love mom
Ed and Evelyn Brubaker <edev@dslnorthwest.net>
Oregon City , Or. u.s.a. - Thursday, July 14, 2005 11:58 AM CDT

Hey, Karen! We are sad to hear of Justin's many problems, but consider it a blessing that you finally have a name for his disease. That has to be somewhat comforting. I'll keep in touch.
Linda Smith <linda135@centurytel.net>
Sweet Home, OR` USA - Thursday, July 14, 2005 11:30 AM CDT

Yeah Karen.. I knew you could do it.......Sorry about the seizures.....

melissa <angels4hailee@aol.com>
cavecreek, az usa - Thursday, July 14, 2005 10:25 AM CDT

just testing
melissa <angels4hailee@aol.com>
cavecreek, az usa - Tuesday, July 12, 2005 4:09 PM CDT

img src="http://tinypic.com/72g3u1.gif" alt="Image hosted by TinyPic.com">
Hi from Hailee and Melissa, enjoy your graphics...
Melissa
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@aol.com>
cavecreek, az usa - Tuesday, July 12, 2005 4:07 PM CDT

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