We have a new glimmer of hope today. I have emailed Sydney's doctor at St Jude...just an update on her status...progress..whatever you want to call it.
I informed them that outside of a few issues (which haven't really gotten worse since we last saw them..but haven't improved either)...Sydney seems to have improved in almost every way...even though we have cut the steroids out almost completely!
I relayed Dr Baptist's thoughts that it might be prudent to have another MRI done locally, so we have a better understanding of just what's going on in that beautiful brain of hers.
I asked if it is a common thing for children on hospice, to be so low...almost to the point of death..literally...then, to just suddenly wake up, as if from a dream, and decide to live again.
I also wanted to know, that if the tumor/tumors have stabilized (stopped growing), would there be some possibility of treatment options.
This was his reply:
"Thank you Tasha. This is really great!!. I think it is important to get an MRI to see where we stand. Now depending on the MRI we have to decide on the next step. I hope we will see good results on the MRI.
This is really exciting."
Now...I did not get his permission to use his words...but I think it is safe...as he didn't promise me anything...nor did he give me false hope. He just said it's exciting that things might be happening differently than expected...and I am inclined to agree with him.
It's just a reminder to never give up hope...NEVER!
This is something we have to remember in all aspects of our life...including my mom's situation. Her insurance co has told her they will not cover her upcoming surgery...or anything to do with her cancer issue. They are calling it pre-existing...even though she was never treated for it, or saw a doctor about it until the time that lead to her diagnosis.
They are currently fighting this...but are hoping and praying that it doesn't delay her surgery, as she put it off as long as was safe, as we just didn't know what was happening with Sydney. Please pray for this situation, as her surgery is scheduled for July 13th.
But even that situation is not without hope. Again, we never know just where, when or how the hand of God will move. We just have to resolve ourselves to the fact that we are just along for the ride...the one that ends with His will being accomplished!
I have used this verse often, but seems the best fit for what is in my heart tonight:
Jer. 29:11
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future."
Have a great, happy and safe 4th of July weekend!
God Bless ~ IVESTRONG
