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Reese’s Story

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Latest Journal Update

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It was an eventful week. The details were significant midst the craziness and are unnecessary now. We learned that 1.5 cm can make a huge difference when it comes to R's digestive system. Long story short, he had a g-j tube placed that was 1.5 cm longer than his last which caused much discomfort and difficulty for a week. There were many phone calls and disbelief that such a small difference could lead to such big issues. It did. R has been much happier since the shorter tube was placed and we are slowly increasing his feedings back to full strength. We had just increased his calories in hopes of getting a bit more meat on his bones, but, as usual, he throws a kink in the best plans. 

We're hunkering down a bit during the cold, except for G who throws on his ski mask and goes to the ski hill to snowboard. He's having a blast this winter and we are loving that we can drop him off and leave him for the day. 

All is well and we're happy to be settling into a little less craziness. 
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Comments

2 Comments

Cindy Sawyer
By Cindy Sawyer — last edited
Oh no! What a stressful week for all of you! I'm glad that you got the shorter tube to work successfully again. You poor guys can never catch a break. I'm glad Reese is doing better again. Happy that Griffin is having such an awesome time on the slopes. What an incredible young man he is!
Love all of you dear family so much!
God's Peace,
Jennifer Green
By Jennifer Green
OMG. I'm glad that Reese is doing better now that the shorter tube has been placed, and that G has been able to enjoy himself snowboarding this winter. Have a wonderful weekend and stay warm.
Jennifer Green
c.o.l.e's prayer team
www.colesfoundation.org/