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My Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

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Nena Johnson posted a new journal entry.

It is hard to believe it is August at the end of the week.  Summer is flying by.  We added another probiotic to R's daily meds which has worked a bit to ease some of his ... Read more

Nena Johnson posted a new journal entry.

I posted this on Facebook, but wanted to share here.  Check out the shrieks and snorts ;)  We are so lucky to hear this every so often.   Read more

Nena Johnson posted a new journal entry.

I am lucky to work up on the pediatric floor of our hospital.  We have a new pediatric hospitalist (a doctor who manages care for kids in the hospital) and I asked her ... Read more

Nena Johnson posted a new journal entry.

We bumped calories 2.5% to 1378 a couple of days ago and so far so good.  We'll stay here for a month or so and then bump another 30 calories and see how he tolerates ... Read more

Nena Johnson added a new photo.

Judy Isola signed Reese's Guestbook.

Thinking of you today, Nena! You are doing such a good job with Reese. Sending hugs your way. Love and God's Peace Read more

gretchen salmela signed Reese's Guestbook.

You guys are such good parents! Lucky children. Love and God's Peace. Gretchen Read more

Nena Johnson posted a new journal entry.

R had a regular check up with his pediatrician today.  He weighs 3 lbs less than he did a year ago and 1 lb less than he did 6 months ago.  We have had only one true ... Read more

Nena Johnson posted a new journal entry.

We got back last night from a whirlwind trip to Seattle.  R had a tough, whiny trip on Friday which was helped some by a few extra meds.  Sunday we did all my favorite ... Read more

Nena Johnson posted a new journal entry.

It has been a busy May so far.  R had an appointment in St. Paul on the first.  Dr. D was as pleased as ever with how R looked and acted.  No giggles this time, but ... Read more

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