Reese Johnson
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Reese has a mitochondrial disease, Complex IV deficiency which has caused seizures and significant delays. Our job is to love him as much as we can until it's time to let him go. Please visit the friends we have met on this journey: Kylie; Mary; Zoey; Evan; Gus_and_Van; Jacob; Lydia; Katelyn; Ariana_&_Lucas; Ryan;

Our angel friends: Anna; Jess; Tori; Caroline; Drew_and_McKenna; Will

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  THURSDAY, SEPTEMBER 04, 2008 10:07 AM, CDT
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We are walking in the 2008 Mito Walk to raise awareness of mitochondrial disease in Minneapolis on September 20. We have joined our friend Brooke's team. If you would like to support the UMDF, feel free to go to the above link and donate. If not, that's fine too ;-)


We have our happy boy back and are enjoying him thoroughly. We are camping again this weekend, so I won't be around to update. Again, assume that no news is good news.

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You did what you knew how to do, and when you knew better, you did better. Maya Angelou

"In the midst of life's storms, I stand serene rooted into the earth and reaching for the stars." -Thich Nach Hanh

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EMAIL AUTHOR
nenaelise@yahoo.com

HOSPITAL INFORMATION
Children's Hospitals and Clinics of Minnesota
MN
United States
 
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