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Reese’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

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We heard from Seattle today that we're going to be able to double R's EPI dose. That is a good good thing. We're in the midst of a med bump since the seizure monster has reared his ugly head once again. We find a good place for a few days, then things get not so good. I am crossing my fingers the bump in EPI gives us a bit more even.


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Comments

3 Comments

Nigel Burrell
By Nigel Burrell
I love Reese's hair! :o) As ever, sending best wishes and positive vibes out from the U.K. for Reese and you all.

Nigel xxx
Kim Madill
By Kim Madill
Hang in there my little tough mudder!
anna and rich mattson
By Anna
Glad that you got good news for Reese. How did Griffin's bb season go? Hope all goes well.GP, love you all