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Reese’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

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After many days of many seizures, today seemed better. Seizure control is all about momentum and we were having a hard time getting that momentum stopped. Today was better, with a few smaller seizures, but none of the biggies. Dr. D is on vacation this week, so I am glad that we are getting to a calmer place. We'll keep his rescue med here for a few days then taper off slowly. Not quite sure what our other options are for long term management (our options are very limited) but hopefully Dr. D will have some ideas for us in May.


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Comments

4 Comments

Tina Stoneburner
By Miss S (Miss Tina)
Keep me posted if YOU need anything even if just a visit :). Thinking of you all
Naomi Harju
By
Hoping for better days. He looks so grown up in his latest pictures. You seem to be able to stay strong no matter what happens, little "hero" mother! God's Peace!
Gretchen Piper
By
Thinking of you and hoping things slow way down.
Michelle Robbie
By Michelle Robbie
Thank you for the update. Hugs to you and your family.