Paul’s Story

Site created on March 31, 2008

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

Paul received his diagnosis of multiple myeloma (a relatively rare blood cancer which is in the plasma cells in the bone marrow) in June of 2007. He had radiation followed by an oral chemotherapy drug. His first stem cell transplant was in April, 2008. He had close to two years before relapse. At that point, he joined a clinical trial of another oral chemotherapy drug through Mayo Clinic. He relapsed from that after eight months and then started a weekly IV chemo treatment. After relapsing from that in five months, we visited again with the transplant doctors at KU. An additional chemo drug was added and after two months, it helped to control the disease. He had a second stem cell transplant on January 3, 2012. After this transplant, he was on maintenance chemo with minor tweaks along the way. He relapsed in March, 2014, with a fast growing tumor burrowed in and around his ureter and sciatic nerve. This was painful and he was hospitalized for three nights for diagnostic testing and a plan for treatment. He will have 20 radiation treatments, and then he will start a new chemo plan.

Newest Update

Journal entry by Linda Walker

Today I decided to start giving back to the Community Blood Center. Paul received platelets 30 times in 65 days. He received blood transfusions 14 times in the same time period. He was literally kept alive by the generous contributions of many people. Donating locally is easy. Look up Community Blood Center, enter your zip code for a location close to you, and make an appointment. Most locations are open seven days a week.  I’m guessing that I haven’t donated for about 40 years, so I was not in their system. Donating platelets takes about 2.5 hours. Donating blood takes about 30 minutes. Because I haven’t donated recently, they didn’t have my blood type. Also anyone who has had a pregnancy in the past has to be HLA (human leukocyte antigen) tested in order to donate. You’d have to look that up. I can’t explain it. I “think” that it is to make sure that your blood will not cause any negative issues for the recipient. At any rate, even though I’d made my appointment to donate platelets, I ended up donating blood. They will check my HLA status and blood type so that I can hopefully donate platelets in the future. Platelets can be donated 24 times in one year. Blood can be donated every 56 days. You have to be younger than 75 to donate. 

For those of you that have the time and inclination, please consider donating. It is easy and it saves lives. 
Patients and caregivers love hearing from you; add a comment to show your support.
Help Paul Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Paul's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top