Nicholas’s Story

Site created on March 24, 2009

Nicholas "Nicky" Peña went home to God on September 9, 2010, following a courageous 18 month battle against cancer.  His body could not contain his love for life and spirit.  He never missed an opportunity to laugh and play or to share a heartfeld smile and warm hug with those he encountered.  His strength and perseverance to overcome incredible physical challenges and pain shines as a beacon of hope and encouragement for so many people. He is a son, brother, grandson and friend who continues to be remembered and cherished by us all.



Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all ~ Emily Dickenson

Nicholas is absolutely the strongest, bravest, and most determined 3 year old.   The day before his birthday he began having headaches once a day.  He would ask for medicine and barely pause from playing to take it.  On Tuesday, March 17th, Nicholas had several headaches and then on Wednesday he woke at 5 am in terrible pain.  I took him to the ER in Del Rio and by 0730 we knew he had a brain tumor in the back of his brain.

When I began to cry, he hugged me and asked if I was hurting.  Our 3 year old with a brain tumor was comforting us.  Viv and Alex packed the van and followed Nick and I in the ambulance to Santa Rosa Children's Hospital in San Antonio.  Dr. Patricia A. Mancuso, pediatric neurosurgeon, accepted Nicholas as a patient and immediately ordered a MRI.  Later that night, our lives changed when Viv and I saw the scan.  He had a massive brain tumor.  Dr. Mancuso was very honest about the seriousness of the tumor and the fact that Nick had 3 times the fluid in his brain...Hydrocephalus. 

The following day she put in an external drain to remove the water and relieve the pressure in Nicholas' brain.  On Friday, she performed a biopsy and on Sunday she internalized the shunt.  Nicholas had undergone 3 surgeries in 4 days.  We were told the tumor appeared to be cancer...most likely PNET.

The following Monday, we met with the Oncologist at Santa Rosa, Dr. Shafqat Shah .  We were told more tests needed to be ran to clarify the type of cancer, which now appeared to be ependymoma.

By Thursday, the diagnosis was confirmed, and we began considering all the options.  After consulting with all his doctors and interviewing some surgeons, we decide that Texas Children's Hospital and Robert C. Dauser, M.D. (/FindADoctor/displaybio.asp?person_id=583) are Nicholas' best chance of survival and a quality life.  The plan is to airlift Nicholas and I out tomorrow morning (March 30th).

We have been overwhelmingly appreciative of all the professionals who have cared for Nicholas here at Santa Rosa.  They have anticipated our needs as a family before we could even begin to realize our needs. 

Nicholas has been an amazing miracle.  Through the pain, many seizures and discomfort, he has continued to bless our lives and amaze us everyday!

Keep him in your prayers!

~The amazing thing about miracles is that they happen~

LAST UPDATE: March 2009; for more up-to-date information, please see the "Journal"

Newest Update

Journal entry by Sabrina Pena

It was one year ago today that Nicky went home to Heaven. It seems like only yesterday, then it seems like a life time ago. We know that he is still with us, but we miss hearing his voice and laughter. No matter how bad a day I would have, coming home and seeing would make me forget all about it. The following is the eulogy that I gave in Houston at Nicky's Celebration of Life.

Although we would never be ready to say good-bye to Nicky, we're glad that we had the extra time to do it in. When Nicky was first diagnosed with cancer we were told by his doctors in San Antonio to "pick between quantity and quality of life". Nicky wasn't ready to give up and neither were we. So we ended up in Houston at the Texas Children's and Methodist hospitals, where Nicky got the care that he needed. While here in Houston, he touched many hearts and lives and many hearts and lives touched him. We have a whole new family here in Houston and in Del Rio that we never thought we'd have. He never met anyone that he didn't like and that didn't like him. There were a lot of people that came together to make his last days very special. We still find it hard to believe that our little Nicky could have impacted so many lives. During his journey, Nicky taught me many things. He taught me more about living than I had learned in my entire life. He taught me that you could overcome any obstacle if you just tried hard enough, and you could do it with a smile. Nicky taught me the true meaning of being a father. When I did something Nicky liked, he gave a little "nod" telling me that I had done good. From my son Alex, I learned about optimism and faith. He had these in abundance when Sabrina and I were running short.

True to his nature, Nicky fought hard till the very end. But in the end, his body could not keep up with his spirit. I want to thank everyone today for coming together and celebrating Nicky's life. I am sure that he is looking down from heaven right now and giving us his "nod" of approval.

Patients and caregivers love hearing from you; add a comment to show your support.
Help Nicholas Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Nicholas's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top