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My Story

And now it is Round 2. Laughlin was diagnosed with treatment related AML Leukaemia on Friday 15/11/13 and we will be going into GOSH on Monday 25/11/13 to begin the first 6 week round of treatment. This may be followed by further rounds, with a bone marrow transplant as the final element. Lockie continues to dig deep into the treasure of his heart, facing all this with calmness and openness.

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On the 8th July 2011 our dear son Laughlin Lewis Whiteley was taken into Great Ormond Street hospital for removal of a brain tumour "Medulloblastoma".  The last six weeks Laughlin has made a huge recovery and now Laughlin faces 12 to 18mths of treatment! Already he has started the process of six weeks of radiotherapy and then chemo!  Laughlin has been so brave and has been just amazing and defiantly still keeps giggling and sparkling like a star!  He is a  true "Pirate"  and will ride this rough time with great attack! passion, and will follow "The yellow Brick road" 

Day one the hymn "Fight the good fight with all thy mite" 

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John Whiteley posted a new journal entry, "Into the darkest night".

When Laughlin was three we visited the Tate Modern. At the time there was an installation of a giant shipping container - around 10 times the normal size. It was elevated ... Read more

John Whiteley added a new photo.

John Whiteley added a new photo.

Debbie, Simon & ('Prince') Harry! x signed Laughlin's Guestbook.

A lovely recount John ... it read as if we were all actually there with you. It's no wonder really Prince Harry is becoming regarded as the favourite royal is it?! What a ... Read more

John Whiteley posted a new journal entry, "11 questions".

11 questions Laughlin chose his outfit, himself, for the Wellchild 2014awards last Monday about 3 months ago. When he was, in fact, a well child. He said he was modelling ... Read more

John Whiteley added a new photo.

John Whiteley posted a new journal entry, "Something in the atmosphere".

Each day is now like waiting for a storm to arrive. The temperature plummets – is it here? The wind whips up and the windows rattle – is it here? It rushes through the ... Read more

John Whiteley added a new photo.

John Whiteley posted a new journal entry, "Crunch time".

When I was Laughlin’s age, I began having a re-occuring nightmare that haunted me throughout my childhood. It was of a giant dark mass, a rock, a mountain, a glacier ... Read more

John Whiteley added a new photo.

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