Carol’s Story

Site created on August 22, 2012

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I was diagnosed with endometrial uterine cancer in early July 2004. Surgery was scheduled for July 28 and lots of tests were conducted. Original diagnosis is Papillary Serous Adenocarcinoma of the Ovary, Stage IV, but was later downgraded to Stage III C.



- Surgery included total hysterectomy, omentum, appendix, and part of mass between the vagina and the rectum

- Chemotherapy: Taxol, Gemzar, and Carboplatin from 19 Aug 04 until 11 Jan 05
- 3 recurrences treated with different chemotherapy cocktails and 2 surgeries
- 4th recurrence 6 Aug 12 with abdominal Surgery to remove the mass in the vagina and all of the colon attached to the vaginal mass; radiation to follow
There has been no evidence of cancer since then, but ongoing problems requiring a urologist and challenging situations caused by the permanent ostomy. I can't seem to stay out of the hospital.


- I was at KU in July of 2013 with a high fever and other problems, but came out without a diagnosis;
-  in July of 2014 I went to St Joe's for surgery that was built up to be more involved than it turned out to be (removal of 2 hernias and resection of the small bowel and using mesh to hold up Charlie (my stoma). 
- In October of 2014 I was back at St Joe's with high fever, which turned out to be caused by an abscess (probably from the recent surgery). 
-  Starting 2015 with the hope of staying out of the hospital was short lived. On the night of my birthday I returned to St Joe's with high fever. Although it looked like a possible UTI, it was the return of the abscess. 
- On January 29th I returned to the ER with what I thought was a high fever ( I found out later it was probably a faulty thermometer). I was evaluated and sent home. I had taken 2 Tylenol, so there was no fever present at the hospital. However, this was the first time in years I actually got to go home after an ER visit. I've gotten in the habit of packing as if I would be admitted.
- On Monday March 2nd I returned to the ER and was admitted. I am sorry for the delay ( The Infectious Disease Doctor has joined my brother in urging me to call him as soon as my fever edges above 100). In any case the abscess returned again. This time the Infectious Disease Doctor is taking measures to see if he can force it into submission through the use of IV antibiotic infusions and the catheter draining it.
- As many of you know, I have been walking around with my buddy the 24/7 IV antibiotic and pump. Labs are looking better. I am scheduled for a CT Scan this week. I am hoping my buddy will go away sometime soon.

Newest Update

Journal entry by Carol Ducak

I always felt that cancer was so esoteric. In my case there were symptoms that sent me to the doctor. After that there was surgery and recovering from surgery; chemotherapy and its side effects; but symptoms only the doctor could detect on a physical exam. There is also the feeling between treatments of 'not doing anything' while the disease may be coming back. The first 2 years are the most dangerous for recurrence. Once I was almost there (1 year 11 months); another time it was less than a year; the last time I was almost at 3 years. The CA-125 was a strong marker the first time; the first 4 recurrences it was a weak marker (still in the so-called normal range but into double digits); the 5th and last time the CA-125 didn't budge (a false negative if you will).
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With my colostomy, however, while not as life-threatening as cancer I am forced to be concerned about bodily functions. As a side effect of radiation and having a catheter for 4 - 6 weeks, I now have recurrent UTI (uterine tract infections) - sometimes without symptoms. What can be life-threatening is a total blockage, which is what sent me to the hospital at the end of April. I am forced to monitor my input and output very carefully. The problem is there is not consistence. The same food that caused no effect one day can blow up another day, so it is hard to figure out what is 'safe' to eat.
After I saw Ed Asner with his 1-Man show about 'A Man and His Prostate', which is not autobiographical but told in the first person, I realized that elimination problems can affect anyone, especially as we age.
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