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Austin F.’s Story

Welcome to Austin's pages.

Austin was born with Down Syndrome at 37 weeks. Over the years we have learned he also has Hirschsprungs Disease, neaurogenic colon and bladder, Epilipsy, and asthma. Austin has spent many, many nights in the hospital and has had over 40 surgeries, 5 of them have been major surgeries.

We formed these pages for you to follow Austin's care down this road of life God has given him. It has and may continue to be a bumpy one, but with all your thoughts and prayers, it's much easiers to travel. Thank you and God Bless each and everyone.

Latest Journal Update

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Well another school year has come to an end. Austin is now a first grader. Where has the time gone. When he starts in the fall, he will have a new bladder, glasses, and a FM hearing device. Just like a brand new kid. 

We are now getting ready to head back to Cincinnati Ohio July 14th. He will be admitted the 15th for a PICC line and to start a bowel clean out for surgery the 16th. Urology will be doing a continent reconstruction of the bladder, a cystoscope with possible Botox. Colorectal will be doing a continent appendicostomy revision. Estimated length of surgery is 10 plus hours again. 

I will continue to post daily updates when we arrive there. We ask again if we could have your thoughts and prayers during our stay. Thank you all so much and God Bless all. 
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Comments

7 Comments

Joyce Nosker
By Joyce Nosker
Praying for this upcoming trip and all of the procedures.
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1 person hearted this
Maureen Claypool
By Maureen and Mark
It sounds like he'll be the bionic boy! Sending lots of prayers your way - keep us posted.
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Becky Pulley
By Becky Pulley
such a precious child. Continuing prayers
God Bless you also
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Sarah Nixdorf
By Sarah Nixdorf
Thinking of you.
I had surgery over the weekend and I'm doing great:):)
Best of luck to you.
Www.caring bridge.org/visit/sarahnixdorf
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Lori Hanson
By Lori Hanson in South Dakota
Sending prayers and praying the surgery is a success..
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Lisa Petrow
By lisa petrow
Dear Austin I know you will learn lots of new things in First grade!! Make sure to practice your letters, spelling and numbers so you can be the "wiz kid"
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Al Paquin
By Family — last edited
Best prayers in Austin's journey along with our family. He will need it through the upcoming months. The separation of Austin and mom will be challenging and scary. Pray for the hands and mind's to guide the doctor in his correcting surgery. he's such a strong little guy. With love always your dad, mom and family.
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