Today we headed to Syracuse for Austin's cystogram. He has had many of these so we thought it would be a piece of cake. I was even bragging to child life how awesome Austin does.
Things didn't start to well when registration told us we needed to head up to surgery. I questioned her because any other time its done right in radiology. She even called and confirmed we were to head to the surgery floor. Right then I knew things weren't going to fly to well with Austin. I was right. When we got there he realized where we were and wouldn't walk or even let me take his shoes off. The nurse came in, gave us a gown and said she'd be back in a minute. Austin was not going to get in that gown for the life of him. Finally a different nurse came back and asked me if I knew what was going to happen and if Austin has ever had a cysto without anesthesia. Told her all the time because we cath through his mitrofanoff not from below. She then said that was why we were there, for anesthesia. That's when I bragged Austin up on how well he does with the test. They then decided to move us down to the radiology waiting room. There was no need to be in the surgery wing.
So Austin screamed through the whole test. Took 2 nurses to hold his legs and child life plus myself to control his upper half. The tech asked allot of questions about previous cystos4. Grade 1 meaning mildest reflux up to grade 5 being the most severe. Grade 4 means urine refluxes all the way up the ureter with dilatation of the ureter and the part of the kidney where urine collects. On a good note, they will be fixing this when he has his surgery Feb 10th.
Speaking of the surgery, we leave in 2 weeks. I really haven't begun to pack. I know I should, but I keep saying to myself I still have plenty of time, when really I don't. We leave Feb 5th. Plane leaves at 11;46am, we have a 2 hour lay over in Philly and then we should land around 5:15pm in Cinci. Please at Austin to your pray list. Going to be a long 2 months. Again thank you for all your continue prayers and for traveling with us down this crazy medical road. So good to know we have many following us.