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Austin F.’s Story

Welcome to Austin's pages.

Austin was born with Down Syndrome at 37 weeks. Over the years we have learned he also has Hirschsprungs Disease, neaurogenic colon and bladder, Epilipsy, and asthma. Austin has spent many, many nights in the hospital and has had over 40 surgeries, 5 of them have been major surgeries.

We formed these pages for you to follow Austin's care down this road of life God has given him. It has and may continue to be a bumpy one, but with all your thoughts and prayers, it's much easiers to travel. Thank you and God Bless each and everyone.

Latest Journal Update

Poor luck with drainage caths

Austin has had some poor luck with keeping his sp drain and mitrofanoff drain draining. We have already been over to the clinic twice for them to get fixed. This morning Dr VanderBrink decided it was time to change out the sp drain. Thank goodness we didn't need to go to the or for that. We just headed to radiology for them to change it by using the fluoroscopic procedure.


I am really hoping Austin isn't working on a illness or post op problem. He is acting funny and looks very pekid around the eyes with dark circles forming. Urology is aware of this and wants to know immediately if things change for the worst.


Please keep your thoughts and prayers coming. And thank you to all that have been sending cards. He gets excited to get mail. He lines them up all on the bed and studies each one of them. 😀
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Comments

1 Comment

Joyce Nosker
By Joyce Nosker
Keeping up with the prayers for healing, and now for no new illness.
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