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Austin F.’s Story

Welcome to Austin's pages.

Austin was born with Down Syndrome at 37 weeks. Over the years we have learned he also has Hirschsprungs Disease, neaurogenic colon and bladder, Epilipsy, and asthma. Austin has spent many, many nights in the hospital and has had over 40 surgeries, 5 of them have been major surgeries.

We formed these pages for you to follow Austin's care down this road of life God has given him. It has and may continue to be a bumpy one, but with all your thoughts and prayers, it's much easiers to travel. Thank you and God Bless each and everyone.

Latest Journal Update

Next surgery date

The count down for Austin's next surgery has begun. Seven weeks until we leave for Cinci Ohio again. Feb 5th we fly out and will be there at least until March 26th when his post op apt is. He has tests and pre op apts Feb 6th and his surgery is scheduled for Feb 10th. During the surgery they will be doing a bladder neck reconstruction to keep him from leaking, a ureteral reimplantation to prevent the reflux of urine back to his kidneys ( both sides ), a cysto, and a appendicostomy revision which will fix the prolasps of his Malone so we don't have to keep it cathed constantly.

Austin is doing well since his kidney infection. Has had a few fevers and we are waiting for a urine culture to be read by his doctor. He know has bilateral hydronephrosis/reflux and they are hoping that no damage was done during this last bad infection.

That's really about it for now. Been running around trying to get ready for the holidays and I am no where ready. As always, once we get to Cinci I will be doing daily updates to keep you all informed. Keep the little man in your thoughts and prayers. Going to be another long one. Many thanks from the deepest part of my heart and I hope everyone has a healthy and Happy Holiday time with friends and family.

Much love to all,

Christine




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Comments

2 Comments

Becky Pulley
By Becky Pulley
Thinking of you with love and prayers! Have a Merry Christmas
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1 person hearted this
Andrelei Grisnich
By Andrelei and Dustin
Always thinking of you guys! That is going to be a long haul for you! I hope the surgery is successful so you guys can get a good break. Take Care!
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1 person hearted this