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In Honor of Austin F.

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Austin F.’s Story

Welcome to Austin's pages.

Austin was born with Down Syndrome at 37 weeks. Over the years we have learned he also has Hirschsprungs Disease, neaurogenic colon and bladder, Epilipsy, and asthma. Austin has spent many, many nights in the hospital and has had over 40 surgeries, 5 of them have been major surgeries.

We formed these pages for you to follow Austin's care down this road of life God has given him. It has and may continue to be a bumpy one, but with all your thoughts and prayers, it's much easiers to travel. Thank you and God Bless each and everyone.

Latest Journal Update

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I know, I know...I'm bad. It's been quite a few days since I updated. 

We were discharged from the hospital to the Ronald McDonald House. ( Ron Don for short ) So far things are going well. Austin is still having a lot of blood in his urine bags on and off. I send urology a picture this morning and they don't think a urine culture is  necessary at this time. They are having me do just a few more bolus fluid through his gtube to see if that helps any. 

Austin has been asking for naps around 3pm everyday, which really isn't like him. He will sleep til I wake him for dinner at 6pm, and still go down at 8:30pm for the night then sleep til 9am the next morning. Nights are still filled with bladder spasms which wake us both up many times. We have urology appointments on Tuesdays and Thursday's at 11am for the next 5 weeks. When we went this last Thursday, they said that around the 17th they will start to think about clamping tubes. 

Friday we went over for a added X-ray because Austin is having accidents in between his colon flushes. He has quite a lot of stool still in colon, so the nurse did some tweaking of his flush solution. Hopefully adding another packet of Castile will work. 

Thats is about it for now. Austin is doing well. One day at a time. Slow and steady for him. I will add our address for those who have been asking me for it. Thanks again for all your thoughts and prayers. Keep them coming. We can feel them. God Bless

Ronald McDonals House
Austin Paquin room #69
350 Erkenbrecher Ave
Cincinnati, Oh. 45229




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Comments

7 Comments

Al Paquin
By Al Paquin and crew — last edited
Haha the Ninja Boy. Hope Austin's bladder spasms ease to give you some rest. Nap all you can it's good for both of you. We miss you both tremendously. With lots of love from the N.Y. crew.
Barbara Mahaney
By Nurse Barb
Glad to hear you are out of the hospital. Now it is one day at a time. Miss you and my prayers are with you to get better very soon.
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Sarah Nixdorf
By Sarah Nixdorf
Rest is best. I took about 30 or more naps this summer due to my body being so out of it since this past spring-spare details-. Hoping Austin is better everyday. 💞🙌😃😄😃😄
Www.caringbridge.org/visit/sarahnixdorf
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Mary Isaacson
By Mary Rebhahn Isaacson
Love you guys and can't imagine what you both are going through. Don't know if you've studied nursing Christine, but it sounds like you have enough medical knowledge to easily earn your degree. Hope nights and days go well for your little buddy. Praying that things go better soon!
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Carol Rebhahn
By Carol 💕
Praying for Austin to have success this time around! I don't know who's working harder.....the doctors or you guys!
Does the term guinea pig come to mind with all the "trying this and experimenting with that"? We hope as he heals that improvements are noticed and this time's the charm.
His body is working hard to heal and that is much more exhausting than we may realize. Sleeping is always good medicine so allow him as much sleep as he wants. Take a few cat naps too, if you can. Clearer minds prevail!
Sending you both love in abundance 💕💕💕💕
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Jamie Rebhahn
By Jamie Rebhahn — last edited
Christine thanks for the update's...You and Austin are in my prayers ever day..I love you both very much..can't wait till your little brave guy is able to come home...and your able to come up for a day so our children can meet each other and we can goto the zoo or Billy Beez...God bless and make sure your taking care of you too...if you ever wanna chat please call or text
Cousin Jamie
Xoxoxo
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Al Paquin
By Al Paquin and crew
Many prayers go out to Austin. Cody includes him and Sydney in every one. We hope his bladder spasms subsides. The hope for a full recovery and a safe return home. With more love than can imagine.
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