Austin F.โ€™s Story

Welcome to Austin's pages.

Austin was born with Down Syndrome at 37 weeks. Over the years we have learned he also has Hirschsprungs Disease, neaurogenic colon and bladder, Epilipsy, and asthma. Austin has spent many, many nights in the hospital and has had overย 40 surgeries, 5 of them have been major surgeries.

We formed these pages for you to follow Austin's care down this road of life God has given him. It has and may continue to be a bumpy one, but with all your thoughts and prayers, it's much easiers to travel. Thank you and God Bless each and everyone.

Latest Journal Update

we escaped again

We are back over at the RMH. They released us yesterday. Austin is on 2 antibiotics and they increased his ditrapan from 5 mls to 7.5 mls. They are hoping we can get back down to 5 mls again before we go home.

First night back in the house was ruff. Can't get the over night drain bag to hook right to the side of the bed so it stops draining. At two last night he woke with some really good bladder spasms. By the time I was able to get his bladder empty, he was wide wake. ๐Ÿ˜

We see Urology next week. we are keeping track of his fluid intake and output and we will take that with us next week. There still is some mild leaking from below and his mitrofanoff. If that doesn't get better in the next week's, they may do some botox. Dr VanderBrink is just thinking his bladder just needs to stretch more. They told me that bladder neck surgery takes just a little bit more time to recover due to how they fixed the neck.

That's about it for now. He is glad to be back here and with his new friends he has made here. Two of them are back in the hospital not feeling the greatest. Please say prayers for Jax and Dominick so they can get feeling better and join us at the house soon. Another little friend Ellie is having a heart cath done today, please hold her in prayer also. And again thank you for holding Austin up in your prayers. They mean so much.
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Comments

7 Comments

Joyce Nosker
By Joyce Nosker
Sorry that I'm just now catching up on posts. Praying that by now Austin and you are much closer to being discharged to go HOME.

Praying for a blessed Holy Week.
Lisa Petrow
By lisa petrow
How is Austin doing? No updates= good news!!
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Maresa Visel (AliMama/Downsyn)
By Maresa/AliMama
Glad to hear that he can relax a little bit again. Hope things work out so you can head home before too long.

Hugs,
Maresa
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Friend Forever
By bff4ever in my heart๐Ÿ’ž
Prayers to your little man and to all the kiddos and thier family ๐Ÿ’•๐Ÿ‘ผ๐Ÿ’• ๐Ÿ™
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Sheree Slade
By Sheree and Hope
aww, So glad to hear you're back at RMH!! Praying that they get those spasms under control and decrease the meds again. Adding prayers for Jax, Dominick and Ellie as well. HUGE hugs and butterfly kisses as always. Thinking about you.
www.caringbridge.org/visit/babygirlhope
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Lisa Davis
By Lisa R. Davis
So glad you are back at the RMH with the comforts and support of friends. Prayers will definitely be extended to Austin's friends as well. Thinking of you and looking forward to seeing you soon!
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Al Paquin
By Al Paquin
We all miss you guys allot and can't wait till you get off the plane in Ithaca. Cody and Logan talk every night at dinner about you guys.
Love you guys!
Dad, Cody, Logan and the old ones. Lol
Get well my little buddy.
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