Welcome to Noah's Web Page. It has been provided to keep friends and family updated on Noah's experience with neuroblastoma. On 3 February 2005 a surgeon told us that a tumor in Noah's chest was "aggressive." On 4 February we were told it was neuroblastoma, a childhood cancer. Noah went through extensive testing and we are blessed it was categorized as stage I. Other classifications are low-risk, n-myc nonamplified, and unfavorable Shimada. Please see links below for more information regarding neuroblastoma.

Journal

Sunday, April 17, 2005 2:48 PM CDT

Our appointment went well on Friday. The hospital received a sample of Noah’s tumor and will be checking/confirming the pathology. At our last appointment the doctor told us they were going to request the sample but she wasn’t sure the sample would be sent. It’s nice to know the doctor’s are working across international boundaries. There’s no reason to think the pathology will be different; but, there’s no harm in having another look. They are not checking anything that hasn’t already been checked. If they have any different conclusions, they’ll let us know by the end of next week. It never hurts to have a second opinion – especially when we don’t have to do anything for it!

At our next routine appointment, 13 May, Noah will have an x-ray taken in addition to leaving a urine sample. We’ll check in for the appointment, get a slip for x-ray and bring the film back for the doctor to review during our office visit that day. The x-ray is mostly to help my sanity. There are no symptoms etc. that indicate one is needed. The doctor acknowledged that it is very difficult to accept your child being diagnosed with something so horrible; but, then be told to just “wait and see.”

For anyone wondering if they would do more in the states, they wouldn’t. Our doctor in the states told us he would have been happy with about 60f the tumor being removed. Noah had 90-100f the tumor removed. The doctor was thrilled with that and would not have done any more than the wait and see approach. He told us that before we even had all of the pathology results. Also, I’ve read about other people’s situations and they’ve been told the same thing. IWe are incredibly blessed that it had not spread and he does not need chemotherapy.

Noah is as funny as ever. He enjoyed having his reflexes checked. He had a lot of fun and cracked up kicking in advance of the doctor’s tapping. She ended up asking him to close his eyes (while chuckling herself). He closed his eyes, still laughing.

I’ve added pictures of Noah and Nathan (click on "view photos” below). They won large Easter baskets at an Easter egg hunt (both grand prizes within the 3-5 age category!). They both happily donated their baskets to the pediatric ward of our local hospital. We were very proud of them!

Thank you to everyone who has continued to pray for Noah. We really appreciate it.

We expect to have his next MRI on 3 June with our follow-up appointment on 10 June.

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E-mail Author: halegl@aol.com

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