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- your browser may not have loaded the new page. Click here to sign the guestbook. Click here to go back to the main page. Click here to view older guestbook entries. Hi there, it's your old friend in Teterboro. Just wanted to let you know that I was thinking of you. Hope all is well and I still keep you all in my thoughts and prayers. Kimberly Welsh <mo_love_99@hotmail.com> Nutley, NJ USA - Saturday, June 11, 2011 9:27 AM CDT HI Guys, Just a note to say hello~ I hope you are doing well. God Bless, Love, Ellen http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Marstons Mills, Ma United States - Saturday, July 24, 2010 0:37 AM CDT Hey Carolyn, I enjoy reading your updates! It's great to see you raising much needed money for research. I can't wait for the day that no more children lose their lives to the nasty disease. I hope and pray you continue to live a healthy and happy life free of NB! Tawny <TawnyTearz@aol.com> Miami, FL USA - Thursday, June 17, 2010 8:48 PM CDT Hey Carolyn - Last time I visited this page you were still a baby. I think it was in early 2004. I was buying something on ebay today and was prompted to donate to St. Judes Research Hospital for Children. I remembered your case and so I went ahead and donated. I wanted to see how you were doing so I went in search of this guest page. It was a great relief to read that you are ok and are doing well. God Bless you sweetie! Juan Casero <caserojj@gmail.com> Miami, FL USA - Thursday, April 29, 2010 1:32 PM CDT My 6 year old daughter has recently been diagnosed with the same thing. I have not yet read the journal, but look forward to it as she is a survivor - as you all are. Thank you for sharing your story. Arlene Perry <arleneperry@xtra.co.nz> Napier, New Zealand - Friday, December 18, 2009 3:26 AM CST It is a blessing to read your journey because there is a beautiful ending. What hope this gives me! As I look at Carolyn so radiant and happy on her first day of 1st grade, I had tears of joy. Good for her; she is lighting up this world! Marian Moffett Marian Moffett <moffetts@napanet.net> Napa, ca usa - Wednesday, September 23, 2009 7:24 PM CDT https://www.carepages.com/carepages/LilyAnderson Please, if you have time, send a message of hope to our grandniece, Lily. She was just diagnosed with Stage IV Neuroblastoma, and she's eight years old. I am so happy that your daughter is cancer-free. Thank you. Kim Trott <Kimmer827@yahoo.com> Erie, PA USA - Thursday, September 10, 2009 11:24 PM CDT Hi Jen, Thinking of you and Carolyn as the new school year begins. Hope all is well. Carolyn looks great. Talk to you soon. Maria Maria Borsch <mariaborsch@aol.com> Flushing, NY USA - Thursday, September 10, 2009 7:03 PM CDT Jen, Hmm... let's see, no first day of school photos... Fairfax must be on a different schedule... no way you could fall into that bad mom category... btw, I posted my picture on fb (I had to work that morning, so I did the best I could ;) Good luck with the school this year. Maria Dania Beach, FL - Sunday, August 30, 2009 3:24 PM CDT Hi Jen and Carolyn Thank you so much for the comments in Tylers Guestbook. Yes, we love SLO county. My husband and I both work in SLO (well, I used to but I don't work right now) and my mother lives in Cambria. She runs a B&B out of her home so if you ever go back, please let me know. You must visit Hearst Beach, one of our favorites too!! If you haven't had the chance, Avila Beach is beautiful too--but usually is busier!! I am so happy to read your daughters page and see how well she is doing. Your posts on ACOR are always so informative and helpful, thank you for that!! Take care and do email me or call me if you're ever in the area. Also, we should still be there around Sept 3. Tyler is having surgery on August 24 and should be getting out of the hospital by then. We would love to see you. Will you be staying at the Ronald? Take care and thanks again for writing, Karen Borges http://www.caringbridge.org/visit/tylerborges Karen Borges <karenborges@charter.net> - Friday, August 7, 2009 9:52 AM CDT Happy Birthday Carolyn!! I think of you and your Mom & brother often and wonder how you are doing. Congratulations on winning the Optimism speech competition. That was a beautiful speech. I continue my prayers for you and the family. With love, Kimberly <mo_love_99@hotmail.com> Teterboro, NJ USA - Thursday, July 30, 2009 2:04 PM CDT Happy Birthday Carolyn!! Hope you had a great day! Virginia Barnett (Jay's mom) <vlm1960@hotmail.com> Glen Burnie, MD - Thursday, July 30, 2009 1:54 PM CDT Happy Birthday Carolyn!! I think of you and your Mom & brother often and wonder how you are doing. Congratulations on winning the Optimism speech competition. That was a beautiful speech. I continue my prayers for you and the family. With love, Kimberly <mo_love_99@hotmail.com> Teterboro, NJ USA - Thursday, July 30, 2009 1:54 PM CDT Happy Birthday Carolyn! have a great day. something is heading your way in the mail. Love you very much! aunt linda & uncle pat & angel ryan <padwik@yahoo.com> long island, ny usa - Thursday, July 30, 2009 8:38 AM CDT Reminder: I'm blogging about Carolyn at 1pm EST on Sat July 25! http://bloggingforkids.shebecameabutterfly.net/ Friends & family can donate in Carolyn's honor here: http://www.change.org/band_of_parents/projects/fundraising/band_of_parents_blogathon_2009 Nikki <pookielocks@ymail.com> - Thursday, July 23, 2009 11:10 AM CDT Hi Guys... Happy 4th!!!!! sending our love. Linda, Pat and angel Ryan (www.caringbridge.org/mi/ryanc) <padwik@yahoo.com> long island, ny usa - Saturday, July 4, 2009 1:14 PM CDT Hi, I am the grandmother of a child, Katie, who is three and a half, who was dx May 14 this year with NB stage IV. I saw your site link in a post on the NBlist and I always want to talk to parents of children who have stayed NED for a long time. Sounds like your daughter is still doing well, and I read her speech and it was awesome. My grandbaby is going to undergo surgery on Mon. July 6, the chemo shrunk her main tumor on her renal gland by 75%! We are excited. She has done very well with ther first two rounds of chemo wiht good counts and only one episode of a reaction to Chemo where she almost got dehydrated, but that is all. She even still has her hair. So we were worried that the chemo was not doing its job, but seems as if it has. They say our Katies surgery will take 13 to 20 hours. THis is frightening. However we have trusted our Lord and savior this far and he has brought her through so we know he will continue to do so. I just wanted to get your take on the TX plan for Katie as much as I know it anyway. After surgery, she will recover for at least a week and then the third round of chemo will start. This will be a three day hard chemo as I understand it. Then I think one more round and then stem cell harvest if her counts are right. Then stem cell rescue I think which all of this sounds really dangerous to me. I am not in there to hear what the doc says.I hear it second hand from my daughter so I may not have it all right. I am not sure if she will get the antibody tx but I sure hope so because I hear really good things about that for keeping them cancer free. ANY thoughts that you might have would be much appreciated. my email is vickiej57@netzero.com but I guess you can see that below. Thanks for any help you can be. Vickie Riley Vickie Riley <vickiej57@netzero.com> Daisetta , Tx USA - Friday, July 3, 2009 2:07 PM CDT Carolyn,We hope you're having a wonderful day. God bless,love & hugs,Linn,Michael,Daniel & Ariel The Marrero's <gillinn7@msn.com> Port Orchard, Wa USA - Sunday, June 7, 2009 1:53 AM CDT It was so good to hear from you - thank you so much for the encouragement. I was just wondering 2 years ago your daughter was diagnosed....which treatment did you do? We have a choice at this point of treatment A - which is just regular (chemo, surgery, stem cell transplant, radiation, etc.), but the treatment B has you doing chemo 2 times and stem cell transplant 2 times? We know that Carter has done A and it has come back...just have to make a really hard decision on which is the best way to go about this. I was just curious what you did/your comments. We are thinking of you and thank you again for your encouraging story. Always nice to hear POSITIVE THINGS. Again thank you and you will be in our prayers as well. AMY Amy Ward <ward_kirk@yahoo.com> Houlton, Me 04730 - Wednesday, May 6, 2009 7:10 PM CDT I've been thinkin' about you! xoxo love, sylvia Sylvia <smp75@msn.com> - Monday, April 20, 2009 8:02 PM CDT Just stopping by to say hello! love, Ellen and the kids http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, MA United States - Monday, March 23, 2009 10:05 AM CDT team Coveney It is so great to find your site. My Daughter is 3 years post nb treatment and is doing well. She is 6 years old and is in grade 1. I am so happy you are doing well so far out of treatment! You are an inspiration. I hope to keep in touch. www.caringbridge.org/visit/angelahill Angela's Mom (Holly) Winnipeg, Manitoba Canada - Tuesday, March 17, 2009 0:16 AM CDT Hi Carolyn! Your speech is so touching. Congratulations on winning the competition. I hope things went well at the next level. I guess you and Mamie were born about the same time. Her birthday is June 19, which would have been on Father's Day the year she went to live with Jesus. Her cancer diagnosis came about three months after yours. www.caringbridge.org/al/mamieadams Mamie's Daddy <george.f.adams@us.army.mil> Huntsville, AL USA - Thursday, March 12, 2009 10:18 PM CDT Hi guys, did you get the nice weather we did today? Haven't heard from you guys in awhile... hope all is well. Love, Aunt Linda & Uncle Pat (www.caringbridge.org/mi/ryanc <padwik@yahoo.com> long island, ny 11545 - Saturday, March 7, 2009 8:39 PM CST Hi Carolyn, We know you'll do a great job during the speech competition; just speak from your heart. Just know Ryan will be smiling down on you from Heaven when you are doing your speech today. Love you very much! Aunt Linda & Uncle Pat (www.caringbridge.org/mi/ryanc) <padwik@yahoo.com> Long Island , NY USA - Saturday, February 21, 2009 6:43 AM CST We just got the guestbook message you wrote. I'm so glad you found our site as well. We hardly get on caringbridge so I apologize. Things are great. I'm so glad Carolyn is a success story as well. Keep in touch. Kelley, Mason and Monica Kelley J. Kassay <kk6n@virginia.edu> Charlottesville, va united states - Tuesday, February 17, 2009 8:45 PM CST Congratulations Carolyn! I am so proud of that speech. Taylor has to do an oral report at school next week and he is very scared! I will have to show him what you did and how well you did! We are praying for you always! Love, Kim and Taylor www.taylorwatts.org Kim Watts <jimandkimwatts@yahoo.com> McCalla, al - Sunday, February 15, 2009 12:11 AM CST Hey there Carolyn! Pat and Linda are close friends of mine and precious Ryan has been and always will have a special place in my heart, your words were dear and inspirational. Congrats to you! God Bless. Heather Pavlovcic <heathpav@att.net> Redford, MI - Wednesday, February 11, 2009 8:08 PM CST I'm so proud of you Carolyn! Great job!! ~Nikki from the NB Blogathon nikki <pookielocks@ymail.com> columbus, oh - Wednesday, February 4, 2009 8:42 PM CST Carolyn, I can't begin to tell you how much your speech touched me and I can tell how hard you worked on it. Your effort really paid off and I am so very proud of you. xoxox Marion marion shapiro <mas10n@aol.com> nyc, ny usa - Sunday, February 1, 2009 8:08 PM CST Way to go Carolyn! That was one incredible speech given by an incredible young lady! Janene Freerksen <janenef@cox.net> Topeka, KS Shawnee - Saturday, January 31, 2009 8:20 PM CST Great speech Carloyn. All I can say is - go girl! On to state finals!! Lara Cady Weberling <kevinandlara@hotmail.com> The Woodlands, TX USA - Saturday, January 24, 2009 5:52 PM CST What a great job Carolyn! I'm sure your friend Ryan is very, very proud of you! I'm glad you like your new school and friends. I hope you win the big prize, you deserve it! I will be there Cheering you on when you are old enough to join Fred's Team! Love Ellen, and your friends on Cape Cod, Scott, Kathleen, Sean and Heather Ellen Hanson <ehanson89@aol.com> Cape Cod, MA United States - Saturday, January 24, 2009 2:08 AM CST What a wonderful speech. Congratulations to you Carolyn! My little girl Catherine was also diagnosed with Stage 4 neuroblastoma but she is doing great now. She has hearing aids that are blue and pink swirl. So happy to hear how well you are doing. Ellen Blair Arlington, VA USA - Thursday, January 22, 2009 9:29 PM CST Oh Carolyn.......that is beautiful. You brought tears to my eyes. We will always remember Ryan, won't we? You are so very special. Thank you. Sending love and hugs your way! love, sylvia Sylvia <smp75@msn.com> - Thursday, January 22, 2009 8:08 PM CST Congratulations, Carolyn! What a wonderful speach and your trophy looks really cool! Good luck on the next competition- - you will do great! Candace and Benjamin www.caringbridge.org/co/benjaminmason Candace Mason <candacemas@aol.com> East Lansing, MI USA - Thursday, January 22, 2009 3:34 PM CST Carolyn, Pat and I are so very proud of YOU!!! and it warms our hearts that you always remember Ryan. I know he is smiling down on you. Sending much love, Aunt Linda & Uncle Pat <padwik@yahoo.com> Long Island, NY usa - Thursday, January 22, 2009 2:19 PM CST Hi Jen, I am a friend of Ryan Connolly's parents. For being so young, you are truly an inspiration to both young and old (me). I cannot phantom what life has been like for you but from reading your words and your look to the future is a blessing to me. You are so uplifting and enthusiastic. Thank you for lifting me. May God continue to bless you in your daily walk. Mary E. Jackson <mjackson2@bcbsm.com> Farmington Hills, MI 48334 - Thursday, January 22, 2009 12:23 AM CST Thank you for sharing Jen and awesome speech Carolyn. You are an inspiring little gal who is amazingly smart and "optomistic". What a great job you did. It almost brought tears to my eyes the way you tell your story of your past and your treatment for cancer. Your story of Ryan and you recognizing his struggle and comparing it to your own battle, well what can I say? More amazing! You go girl. You are a winner. You are beating the odds and you will BE ON Fred's team. I love your life goals, they are so realistic and have a purpose. A purpose, to help others who are where you have been. You are going to grow up to be one fine lady with a heart of gold. Congrats!! Connie Strayer <cstrayer@embarqmail.com> Boiling Springs, PA - Thursday, January 22, 2009 11:38 AM CST HI Carolyn! I saw your mom's post on the list serv and quickly went to your site to read you speech - wow! My Alex has NB, he has had it for over three years, we live in Texas... I am on a trip to California right now... the snow is wet, I think I will go discover vs. ski... Do you know how to Ski... you are so sporty you might like it. Alex loves to ski, and often notes how great God is - "He creates such beautiful things", he says. So despite this "thing" called cancer we stand united in optimism that indeed tomorrow will be a better day... thank you for posting... you made my day! Ann Podeszwa mom to Alex (8), Charlotte (6) and Sophie (5) Ann Podeszwa <podeszwahome@att.net> - Thursday, January 22, 2009 10:31 AM CST Carolyn, Your speech was absolutely awesome. You should be very proud of yourself. I hope you do well in the next level of the competition and that you always maintain your optismistic spirit. I thank you for all you are doing to raise awareness to Neuroblastoma. Allison Barnes -- mom to Morgan, NB IV Survivor <allisonbarnes@triad.rr.com> Lewisville, NC USA - Thursday, January 22, 2009 10:00 AM CST WOWWWWWWWWWWWW!!!!! AWESOME SPEECH!!! Carolyn I wish so much I could have heard you deliver that wonderful speech!!! Tell Momma to upload it to YouTube!!!! :) The entire NB community is extremely proud of you and your precious spin on optimism...well done sweet girl!!! Donna Ludwinski <ludfarm@arvig.net> Park Rapids, MN - Thursday, January 22, 2009 9:21 AM CST Awesome! Congratulations! Lots of love, Maria & Alina <mrdecar@comcast.net> - Thursday, January 22, 2009 9:20 AM CST Hey Jen, thanks for the update and congratulations to Carolyn. Wow! So glad you are back in the house. Happy New Year to you too! God Bless, Love, Ellen and the kids http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, Ma - Monday, January 19, 2009 1:43 AM CST Hi Carolyn, This is Jenna. I just came by to see how you are doing. I wish you health and happiness in 2009. Praying for you. caringbridge.org/visit/champ291 Jenna <allfighterswin@gmail.com> Kamloops, BC Canada - Saturday, January 17, 2009 1:44 PM CST Great job on your race, Carolyn!!!! Nikki from the NB Blogathon nikki <pookielocks@ymail.com> columbus, oh - Wednesday, January 14, 2009 7:41 PM CST Hi Jen! Thanks so much for remembering Michaela! I can always count on you as one who doesn't forget and it means the world to me! Carolyn looks amazing, robust and beautiful! I love to hear all the joy your children bring to you and thank you for continuing to share them with us all! Bless your family in the new year with continued health, love and happiness! With Love and Friendship~Kim Kimberly Mease <kdknd@comcast.net> Lancaster, PA USA - Friday, January 2, 2009 6:50 PM CST Hi guys... Happy 2009! Love you very much! Aunt Linda & Uncle Pat (www.caringbridge.org/mi/ryanc) <padwik@yahoo.com> Long Island, NY USA - Thursday, January 1, 2009 9:49 AM CST Hi mommy, It's me booboo, i just wanted to sign the guestbook and say hi to you!!!!!!!!!!!!!!!!!! Carolyn Coveney Springfield, va usa - Thursday, December 25, 2008 8:11 PM CST Wishing you guys a Merry Xmas. We saw Anne Marie last night at Finnegan's Wake and she sends her love. Love, Linda, Pat & Angel Ryan (www.caringbridge.org/mi/ryanc) <padwik@yahoo.com> Long Island , NY USA - Wednesday, December 24, 2008 6:09 AM CST Wanted to stop by and wish you a verfy Merry Christmas and a Happy New Year. Connie Strayer <cstrayer@embarqmail.com> Boiling Springs, PA - Tuesday, December 23, 2008 7:03 PM CST Fun seeing you at the tree lighting. My son got such a kick out of what Evan said he was going to do with that toy. Wishing you all a very Merry Christmas and healthy 2009! xoxo Allison Hantske <ahantske@comcast.net> Annapolis, MD USA - Friday, December 19, 2008 8:57 PM CST Just checking in on you guys. I hope you had a fabulous Thanksgiving & will have an even better Holiday season. I think of you all often and hope that things are fantabulous for all. With love, always, your friend @ the Atlantic counter in Teterboro Kimberly <mo_love_99@hotmail.com> Teterboro, NJ USA - Saturday, December 13, 2008 9:42 PM CST Hope you guys had a great Thanksgiving. talk to you soon. Love, Aunt Linda & Uncle Pat Long Island, NY 11545 - Sunday, November 30, 2008 9:29 AM CST Hi Jen, I just wanted to wish you and your family a Happy Thanksgiving. Hope all is well with Carolyn. Maria (Michele's mom) Maria Borsch <mariaborsch@aol.com> Flushing, NY United States - Thursday, November 27, 2008 8:06 AM CST Happy Thanksgiving! www.caringbridge.org/visit/quiltsofhope www.freewebs.com/quilts-of-hope Jaime <aquiltofhope@aol.com> - Wednesday, November 26, 2008 3:34 PM CST Popping in to see how you are doing? Hope you are doing well. Wondering if you are back in your house yet, or not? Check for an update at a later time. http://www.caringbridge.org/pa/jaredstrayer Connie Strayer <cstrayer@embarqmail.com> Boiling Springs, PA - Tuesday, November 11, 2008 1:35 PM CST Hi Jen and Carolyn, We had so much fun with you guys. Carolyn, I bet you've watched the Kit video some more at Shirley and Don's house. Bernie said Hello and he was happy to see you both as well. Love, Aunt Linda & Uncle Pat Long Island, NY USA - Tuesday, November 4, 2008 8:42 AM CST Hey Jen, Carolyn, & Evan, I just wanted to pass by and let you know that I was thinking of you. I hope you are doing well, and out of that apartment soon. Thinking & praying for you always .... Kimberly (your friend always @ the Atlantic counter in Teterboro, NJ <MO_LOVE_99@HOTMAIL.COM> Nutley, NJ USA - Friday, October 31, 2008 5:58 AM CDT Hi guys, thinking of you! I'll try to give you a call this weekend. Love, Aunt Linda & Uncle Pat (www.caringbridge.org/mi/ryanc) <padwik@yahoo,.conm> Long Island, NY USA - Tuesday, October 7, 2008 9:07 PM CDT Hey gang! I was just thinking about you, so dropped in to say 'hi'! Hope all is going well - we're doing well here, getting geared up for Halloween and winter, which will soon follow. Hugs to you all! Laura Minn, MN USA - Friday, October 3, 2008 8:12 AM CDT Stopping by to say hello! Love, Ellen, Scott, Kathleen, Sean and Heather http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, Ma United States - Thursday, September 25, 2008 1:10 AM CDT I love the back to school pics. Hope school is going great for both of you. http://www.caringbridge.org/pa/jaredstrayer Connie Strayer <cstrayer@embarqmail.com> Boiling Springs, PA - Tuesday, September 9, 2008 5:57 AM CDT Wow... first day of school. Carolyn you're such a cutie and Evan looks so cool. Love, Aunt Linda & Uncle Pat Long Island, NY usa - Tuesday, September 2, 2008 4:34 PM CDT Hi Carolyn & Evan, Great picture of you both in the tree at the Hanson's. Hope you had a great vacation; your mom probably needs another one with all the driving she did. Tell mom that Bernie is actually working on the bathroom off the kitchen. Talk to you soon! Love, Linda, Pat and Angel Ryan www.caringbridge.org/mi/ryanc Long Island, NY 11545 - Monday, September 1, 2008 7:55 AM CDT Carolyn, sorry this is belated, but "Happy Birthday!" I just read your page and wanted to say how proud I am of you - making it 5 years! Awesome! My daughter, Destiny, is now a 18 year survivor - she is 21! Wow - she's getting old, huh? She is a very little person, so she doesn't look 21, but I can't wait until YOU celebrate 18 years too -- I love your American Girl doll - Des had (has) one when she was her age... took it everywhere she went! Samantha was her name -- she still has it in her room. Funny, huh? Keep doing great and we will keep you in our prayers - Esther Hurst (Destiny's mom) Esther Hurst <desmomster@gmail.com> Fayetteville, GA USA - Sunday, August 31, 2008 9:22 PM CDT Happy Birthday. Thank you Jen for taking the time to help my son Andrew on advice for NB treatment. We will be praying for you. CARINGBRIDGE andrewkrolczyk Steve Krolczyk <KROLMEC@MSN.COM > Getzville, ny us - Sunday, August 31, 2008 8:42 PM CDT Hi Carolyn and Evan, thanks for coming to see us! Everyone had a great time. We hope you will come back again another time. Sorry it is such a long drive for Mom. Keep in touch with us, OK! I hope your home safe and getting ready for school. God Bless, Love, Ellen and the kids, Scott A., Kathleen, Sean and Heather http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, Ma - Friday, August 29, 2008 1:47 AM CDT Happy Birthday Carolyn! Wishing you a wonderful year ahead. Come by and visit the old neighborhood sometime! Love, Jane and Elizabeth Jane <janemckinley@cox.net> - Monday, August 25, 2008 4:10 PM CDT Love the picture from the American Girl Place. That place is great. I hope you are ready for school and have a great school year. Love, Melinda and Erin http://www.caringbridge.org/visit/erinkeenan Melinda <brmel1967@comcast.net> - Thursday, August 21, 2008 6:44 PM CDT Hello, Jen & Carolyn! I'm sorry that I'm late in wishing Little Miss Carolyn a VERY HAPPY BIRTHDAY! (I do hope you had TONS of fun!) What a TREMENDOUS event - I'm SO HAPPY that you're celebrating DOUBLE DIGITS! WOW! Jen, I wanted to say, "Thanks," for your sweet message on Brent's site. It was hard to let my grandma "go" but such a BLESSING to think of her in HEAVEN with Brent giving him LOTS of HUGS & KISSES! =-) I don't think I've been to your site before, I'll save it and check back often. THANKS AGAIN.. Love, Tonya Link, Tonya, Zach & Gabe Nason, ALWAYS REMEMBERING Brent <nason5@aol.com> Mathiston, MS USA - Saturday, August 16, 2008 11:31 AM CDT Hi Carolyn, Looks like you had a great time in NYC... hope to see you guys soon! Sending much love, Aunt Linda & Uncle Pat <padwik@yahoo.com> Long Island, NY USA - Monday, August 11, 2008 10:29 AM CDT Happy Birthday Carolyn! Hugs from Annapolis. Allison & Amelia Hantske <ahantske@comcast.net> Annapolis, MD United States - Saturday, August 9, 2008 2:18 PM CDT Hi Jen and Carolyn, I am just reading your update from the 29th today. Happy Birthday Carolyn, I hope you had a great day and lots of fun. You deserve it. Love, Maria (Michele's mom) Maria Borsch <mariaborsch@aol.com> Flushing, NY United States - Thursday, August 7, 2008 2:49 PM CDT Happy Birthday Carolyn! Wow, I can't believe you are 10 years old! It doesn't seem that long ago that you were 5 years old and at RMDH and MSKCC with me and Jay. I hope that you had a great day! Say hello to your mom for me. Virginia Barnett www.caringbridge.com/md/jaybarnett <vlm1960@hotmail.com> Glen Burnie, MD - Monday, August 4, 2008 0:08 AM CDT Carolyn, Happy late Birthday! Sounds like you had a wonderful celebration! Janene Freerksen <janenef@cox.net> Topeka, KS Shawnee - Friday, August 1, 2008 5:00 PM CDT Carolyn, Happy Birthday! Kizzilion hugs and kisses. Love, Carla carla hubacher <hubachers7@aol.com> - Thursday, July 31, 2008 8:38 PM CDT Carolyn, Happy Birthday! What a huge day for all of you. You are such an inspiration for all of us. The girls and I saw the movie Kit and loved it. I hope you have a wonderful time this weekend at the American Girl Place. We love it there, even though my pocketbook doesn't. Happy Birthday! Melinda and Erin Melinda Keenan <brmel1967@comcast.net> - Wednesday, July 30, 2008 9:36 PM CDT Carolyn - Happiest of birthdays! I am a friend of Susan Gentry's whose son was Nathan. I was happy to see that you are a survivor! How wonderful! May God continue to bless you with good health and many more great birthday celebrations! jude horvath in PGH, PA xoxoxo jude horvath < heyjude62248@comcast.net> white oak , pa usa - Tuesday, July 29, 2008 9:30 PM CDT Happy Happy birthday Carolyn!!! Sounds like you're having an amazing celebration! Have a wonderful year, and make each year the best ever! Hugs and Love Ronit <gliksmanronit@hotmail.com> Israel - Tuesday, July 29, 2008 8:47 PM CDT Happy Birthday Carolyn!!! Wishing you the best year ever, with lots of cake today. American Girl Place sounds like the best place for a bithday, say hi to Kit from MaryGrace, she loved the movie, too! Sending our love, always. Love, The Adamson Family Diane, David, MaryGrace, and our angel^Emily^ www.caringbridge.org/fl/emilyadamson Diane Adamson <ERDIANE@aol.com> Cooper City, FL - Tuesday, July 29, 2008 4:51 PM CDT Happy birthday!!! I hope you have a wonderful day. Sounds like you and your mom have some special times planned. God bless and enjoy. Thinking of you. 10 is amazing. Connie Strayer <cstrayer@embarqmail.com> Boiling Springs, PA - Tuesday, July 29, 2008 4:00 PM CDT Happy Birthday Carolyn! We hope you have a wonderful day. You deserve the best Allison & Morgan Barnes <allisonbarnes@triad.rr.com> Lewisville, NC - Tuesday, July 29, 2008 1:49 PM CDT Happy Birthday!! 10, what a wonderful age...but aren't they all?! Wishing you many more birthdays as a cancer-free, thriving young lady. Sending you all the best for a memorable birthday. Thy Tran CA USA - Tuesday, July 29, 2008 1:44 PM CDT Oh Happy DAYS!!! Happy Birthday to a beautiful young lady!!! I love your choice of celebration Carolyn--I can't think of anything I would rather do than lunch at American Girl Place!!!! Have a BLAST!!!!! Here's to many many many more, and blessings for the most wonderful year yet! Donna Ludwinski <ludfarm@arvig.net> Park Rapids, MN - Tuesday, July 29, 2008 12:47 AM CDT Happy Birthday Carolyn!!!!!!! Sending much love. Aunt Linda & Uncle Pat Long Island, NY USA - Tuesday, July 29, 2008 10:17 AM CDT Carolyn: Happy Birthday!!!!!!I hope you have a great day. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepage LauraVDB <carolyn_wing@yahoo.com> Carson City, MI - Tuesday, July 29, 2008 7:00 AM CDT Hi Carolyn, Happy Birthday! Jen, Great job on the handbook. How's the house going? Hugs, Mari a & Alina - Monday, July 28, 2008 7:21 PM CDT Hi, I am the Dad of AJ, a 14 year old cancer victim. I wanted to make you aware (maybe again) and enlist your help for the Cure Childhood Cancer petition! The GREAT news is that CureSearch, LIVESTRONG and Alex’s Lemonade Stands have ALL written about the Petition on their websites! And TX Children’s and DUKE have both allowed us to setup paper versions inside the hospitals! WE ARE MAKING HEADWAY and are at over 11,000 signatures! But we need your help again. If you can please make your readers aware, email it around again, and give just a little publicity, I think we can make this happen! Thanks again, AJs Dad http://www.thepetitionsite.com/1/CureChildhoodCancer AJs Dad <ajsdad4227@gmail.com> - Sunday, July 27, 2008 8:16 AM CDT Carolyn: You know the best people are named Carolyn right!!!?? I was thinking about you and so thought I would say HI. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepage LauraVDB <carolyn_wing@yahoo.com> Carson City, m - Saturday, July 26, 2008 12:46 AM CDT You certianly do like to keep life interesting now don't you? Oh it sounds like a mess with the house. keep your positive attitude. I do not know if I could think that way like you. As for the casts, that is wonderful news that things healed so fast and so well. Our children are little fighters. Sounds like the NYC was very nice and a big success. That is fantastic. God bless and take care. http://www.caringbridge.org/pa/jaredstrayer Connie Strayer <cstrayer@embarqmail.com> Boiling Springs, PA - Friday, June 20, 2008 2:51 AM CDT It is so wonderful to hear your story. My son Salvatore is 5 years old. On Sept 10, 2007 he was diagnosed with NB stage IV. He has been through 8 cycles of chemotherapy and 2 surgeries, all at MSKCC. He is currently receiving the 3f8 antibody therapy. He has not yet reached NED but your story has given me hope and strength to deal with his disease. As you know there are not many stories like yours. I am so happy for all of you. GOD bless you & keep you in his care always. Silvia Vanni (Sal's Mom) Silvia Vanni <SilviaVanni@aol.com> North Miami Beach, FL USA - Saturday, May 31, 2008 2:21 PM CDT Jen, I just read your journal entry.. I can't believe what you've been though since we last saw you guys at the Central Park. I'll give you a call you this weekend. Sending much Love, Linda & Pat <padwik@yahoo.com> Long Island, NY USA - Wednesday, May 28, 2008 3:13 PM CDT Hi Carolyn, It was so great seeing you both yesterday. Hope your mom had a great Mother's day. Be sure to give her a big hug from Pat and I. Love, Aunt Linda & Uncle Pat <padwik@yahoo.com> Long Island, NY 11545 - Sunday, May 11, 2008 8:41 PM CDT Have a fantastic day today. Connie Strayer <cstrayer@embarqmail.com> Boiling Springs, PA - Sunday, May 11, 2008 8:08 AM CDT Hi Carolyn, Wow those are some spiffy casts!I do hope it doesn't hurt too much. Just wanted to let you know I am always thinking about you. Carla <Hubachers7@aol.com> - Friday, May 9, 2008 5:42 AM CDT Hi Carolyn My name is Jenna and I came across your site. You are an inspiration and a brave, courageous fighter. You are beautiful inside and out. You will be in my thoughts and prayers. caringbridge.org/visit/champ291 Jenna <nevergiveup301@aol.com> Kamloops, BC Canada - Wednesday, May 7, 2008 11:28 PM CDT Hello!!! I was just thinking about all of the friends/patients/mom's I met at Sloan during my time working there. I am so happy to know that you guys are doing great!!! Carolyn- you look BEAUTIFUL!!!!! you were always such a trooper when you were receiving treatment. I wish you only happiness!! Christine Charles <cmc497@nyu.edu > Hoboken , NJ USA - Sunday, April 27, 2008 8:09 PM CDT Carolyn, It was good to see you at the play. Not sure if you have heard but that was the night Allison ended up breaking her ankle! She was in a cast for almost 4 weeks. A nice purple/pink colored one. She is now in a walking boot till the end of the month. The cast didn't bother her. It just meant lots of pampering to her: mommy giving her her showers, mommy carrying her things for her or her friends and much more. So be sure to tell them what color you want on your feet and enjoy the pampering afterwards :o) Cynthia <cammah@aol.com> - Tuesday, April 15, 2008 9:42 PM CDT Hi Carolyn, Alina has to have eye surgery this year too, and she's not looking forward to it either! After all you've been through and how brave you've been, the toe surgery is going to be a piece of cake! Glad you're enjoying school more. Hugs, Alina and her mom, Maria Galletta - Monday, April 14, 2008 4:11 PM CDT Hi. thank you for the inspiration you have given me. My baby girl(2Yr+) has just been diagnosed NB. They classified her as stage 3 cos hers is big mass about 9x8 crossing the midline and into her spinal cord. We were so lost now. Every day seems so dragy. So far no sight of amplification when they did a biop. Can we keep in touch thru email? My email add is patchialim@hotmail.com. They will be giving her 3 to 4 chemo follow by surgery and 3 to 4 chemo. On N7 protocol. I'm so afraid of losing her. What is the maximum years they can live till? patricia <patchialim@hotmail.com> singapore, Singapore - Friday, April 4, 2008 3:20 AM CDT Jen, I'm so glad that you got what Carolyn needs and that she loves her new school! And to think that people actually flock to Fairfax County for the great schools....! That's great if your kid has no LD problems, eh? Hugs, Lisa Lisa , mom to Brian and Kevin <ltignor@comcast.net> Montclair, VA - Tuesday, April 1, 2008 9:56 PM CDT Hi Carolyn, How are you? Pat and I miss seeing you guys! Tell your mom I'll be calling her soon. Love, Linda, Pat and Angel Ryan www.caringbridge.org/mi/ryanc <padwik@yahoo.com> Long Island, NY USA - Sunday, March 30, 2008 4:24 PM CDT Love & Hope Always www.dylanhartung.net Melissa Hartung New York, NY USA - Friday, March 28, 2008 12:33 AM CDT Wow you were not kidding when you said how much trouble you were having. It is a darn shame that kids have to deal with things like that. It breaks my heart to hear the things the school did to her. I do not know why the school system is what it is and does what it does. We had an easy time of it once the problem was identified. But I can sympathize with you, in the fact that, Jared's teacher use to make him miss part of his second recess to finish his work because he was behind the other kids. Once I told them I did not want to see that happen again and that there are other solutions vs. taking a first graders recess, it has been resolved. Now I see what you meant by telling me that you were glad our district was willing to work for Jared. It is a darn shame that our kids go through NB treatment and then have to deal with people like this in society, that are suppose to be the "educated" ones who are educating others. I am so glad you found a school that meets her needs and provides the services you want. You are an awesome mom to fight for your child without giving up. Some people would have given up when faced with all that challenge. Not you, you fought harder and tougher till you met your daughters needs. Way to go mom!!! You deserve a big pat on the back. If I ever need help, I will ask you. You are a mentor to all us parents dealing with long term effects, be it, hearing or learning. I am proud of you and your insistance for your daughter. Give that girl a big hug for me and tell her I said she is lucky to have a mom like you, because she is. May school bcome easier for you all. God bless and take care. http://www.caringbridge.org/pa/jaredstrayer Connie Strayer <tinkerbell53@netzero.net> Boiling Springs, PA - Thursday, March 13, 2008 1:02 PM CDT Hi Jen and Carolyn, I'm glad to hear you have found the right school for you and wish you a bright and beautiful spring. Enjoy spring break coming up. Best wishes Jane McKinley - Wednesday, March 12, 2008 10:41 AM CDT It seems Ellen wrote almost exactly what I was thinking, but she said it better than I could, so ditto for me. I expect a new update much sooner, with Carolyn's great progress as the good news. Love, Maria Galletta <mrdecar@comcast.net> Dania, FL - Thursday, March 6, 2008 7:28 AM CST Hi, I knew you were having trouble, but Wow! What a great Mom you are to keep at it and be persistant. It is so great to hear that she is loving school. I bet she will catch up to level faster than you think now that she has support. Its not that she hasn't had the will. She is a fighter, like her Mom. Hooray for both of you for not giving up! God Bless, Love, Ellen http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, Ma - Wednesday, March 5, 2008 1:02 AM CST My nephew Nathan Raymond was just declared cancer-free after 5 years !!!!! He too had neuroblastoma stage IV. He went through the chemo, radiation, and stem-cell transplant. He is now 10 and in 4th grade. I wish you nothing but happiness and good health in your life. Kathie Barnicoat Bourne, MA USA - Sunday, March 2, 2008 3:21 PM CST Carolyn: Just stopping by to say HI and to tell you I am praying for you. Hugs and prayers. C Carolyn Wing/Angel_Wings Grandma to Laura Stage IV neuroblastoma carepage LauraVDB <carolyn_wing@yahoo.com> Carson City, MI - Monday, February 25, 2008 2:29 PM CST Hi Jennifer, Just checking in to see how all of you are doing. Everyone looks happy and healthy! I hope this new year is off to a great start for you and your children. Take care, Candace www.caringbridge.org/co/benjaminmason Candace Mason <candacemas@aol.com> Reno, nv usa - Sunday, February 10, 2008 1:55 PM CST Carolyn: I think you have a great name. I have you on my prayer list so thought I would leave you a note. Hugs and prayers. Carolyn Wing/Angel_Wings grandma to Laura Stage IV neuroblastoma carepage Laura VDB <carolyn_wing@yahoo.com> Carson City, MI - Thursday, February 7, 2008 9:08 PM CST Love your little West Highland Terrier (to cute). We have one too. Well actually we have two. One real one and one Webkin and yes they both have the same name, Angel. I hope your new year is off to a great start. May 2008 be filled with fun and good health. caringbridge.org/pa/jaredstrayer Connie Stayer <tinkerbell53@netzero.net> Boiling Springs, PA - Saturday, January 12, 2008 5:10 AM CST Hope you guys had a wonderful Xmas. Sally is so cute... Yoda will have to meet her some day! Sending much love, Linda, Pat & Angel Ryan <padwik@yahoo.com> Long Island, `NY USA - Friday, December 28, 2007 10:22 AM CST Wanted to stop by and wish your family a Merry Christmas and a Happy New Year. May your Holidays be filled with family and fun. caringbridge.org/pa/jaredstrayer Connie Strayer <tinkerbell53@netzero.net> Boiling Springs, PA - Sunday, December 23, 2007 6:06 AM CST Merry Christmas! I hope you have a restful, relaxing and fun holiday. Love, Melinda and Erin http://www.caringbridge.org/visit/erinkeenan Melinda Keenan <brmel1967@comcast.net> - Saturday, December 22, 2007 1:45 PM CST I just received my citrus shortbread cookies from Band of Parents and they are fantastic! Real lemon fragrance and flavor! Nothing else like it out there! Highly recommend them! Mara mother of neuroblastoma angel Laura http://www.caringbridge.org/visit/laurastiles Mara Stiles <ozman1@optonline.net> Boonton Township, NJ - Wednesday, December 12, 2007 7:44 PM CST Keeping you in my thoughts during the Holiday season and in my prayer's always. Brenda MY CHRISTMAS ANGEL <brenda@shaw.ca> Edmonton,Alberta/Canada, - Tuesday, December 11, 2007 0:06 AM CST Happy Thanksgiving. We hope you are all doing well. The Scott Family <jay@alexslemonade.com> wynnewood, pa - Tuesday, November 20, 2007 4:22 PM CST I am so glad to hear that everyone is doing well and enjoying school and activities and oh so very many things! I can imagine how excited they are with the approaching holidays. You are all in my thoughts. Sending much love from NYC, Olivia Olivia Nunez <olivia.nunez@gmail.com> Whitestone, NY - Sunday, November 11, 2007 4:53 PM CST I loved seeing the pictures and reading about your daughter returning to school. It was so uplifting to hear of a survivor of this horrible disease. Laurie Haas <lhaas@usouthal.edu> Mobile , AL USA - Sunday, November 11, 2007 8:30 AM CST Hi Jen, I see that Carolyn is doing very well. That is awesome. I will continue to keep her in my prayers and hope that she can keep moving forward. Love, Maria Maria Borsch <mariaborsch@aol.com> Flushing, NY United States - Sunday, October 21, 2007 8:18 PM CDT HAPPY BIRTHDAY TO YOU --- EVAN!!!!!! HOPE YOUR BIRTHDAY IS FILLED WITH FUN. LOVE, Aunt Linda & Uncle Pat <padwik@yahoo.com> Long Island, NY US - Thursday, October 11, 2007 11:04 PM CDT CONGRATS are in order. I am so happy to hear you join the numbers of children not only surviving this nasty beast but no longer even looking for it! It IS a WONDERFUL feeling isn't it??? Payton hit her 6 year anniversary this summer and I FINALLY gave up the urine test. They have been pushing me to forever but I thought "I needed it" to bring me comfort. But as time passes I realize that not looking for it anymore brings me all the comfort I need! Congrats!!! I am SO happy for you. And thanks for posting the picture, I would have gotten you back if you hadn't! :) Gin Oh, and AMEN on the whole description of school thing and just being thankful...I am truley thankful for every moment I get with them as like you I know how close I came to loosing it. The one good thing about that is you really ENJOY life now! I take time to stop and smell those lovely roses that I rushed by before! Lucky ME!!! www.caringbridge.org/fl/paytonbogert <vbogert@cfl.rr.com> - Saturday, October 6, 2007 11:54 AM CDT Hi Jen, Carolyn, and Evan, I'm so excited that you guys will meet our Wonderful Sylvia (who is such a blessing to us). There is no doubt God planned for all of our paths to cross in life. Talk to you soon! Sending much Love, Aunt Linda & Uncle Pat <padwik@yahoo.com> Long Island, NY usa - Saturday, September 29, 2007 12:23 AM CDT Will I see you in person finally???!!!!! I can't wait!!!! xoxo love, sylvia Sylvia Pituch <smp75@msn.com> Allentown, PA - Sunday, September 23, 2007 9:16 PM CDT Jen, I really appreciate your words "When other people lament about their children growing up too fast, I will be grateful mine have had the chance to grow up at all." That is so exactly how I feel. As each school year begins, I am in awe of the gratitude I feel in my heart. It is somewhat overwhelming. It is so good to see both Evan and Carolyn looking so good. We're rejoicing with you on the word from Dr. K. Enjoy the school year. Janene Freerksen <janenef@cox.net> Topeka , KS Shawnee - Friday, September 14, 2007 8:53 AM CDT Love the new picture! Congratulations on finishing all tests/scans. What an inspiration to us all! Melinda and Erin http://www.caringbridge.org/visit/erinkeenan Melinda Keenan <brmel1967@comcast.net> - Wednesday, September 12, 2007 7:58 PM CDT Pretty as a princess! God Bless, Love, Ellen' http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, Ma - Saturday, August 11, 2007 0:29 AM CDT Happy Birthday to you! Sending much love, Aunt Linda & Uncle Pat <padwik@yahoo.com> long island, ny usa - Sunday, July 29, 2007 11:03 AM CDT Wow you sure have been busy. I want to wish Carolyn a very happy birthday. Sounds like a fun party. p.s. I love those pierced ears. Happy anniversary being NED. That is great. Keep up the good work. We are all routing for that to continue forever and ever. Glad you are able to fight for the testing and get your daughter what she needs. We are not able to get in for our testing until the end of September. We too are having it done by a neuropsycholigist not associated with the shcool. I am anxious to get it done and find out what is really going on with Jared. It really concerns me. Well you have a great summer what is left of it and talk to you soon. Have fun and stay healthy. caringbridge.org/pa/jaredstrayer Connie <TINKERBELL53@NETZERO.NET> Boiling Springs, PA - Sunday, July 29, 2007 6:34 AM CDT Happy Birthday Carolyn! 4 years ned, wo-whooo! Congratulations on the new job Jennifer! Hi Evan, handsome boy! (Call me if I can help in any way with the handbook.) Take care. Maria & Alina Dania, FL - Tuesday, July 24, 2007 9:27 AM CDT Carolyn, What a beautiful picture! I love your new pierced ears and I hope you have a wonderful birthday! Enjoy the tea party and have an incredible time with your family and friends! Jen, good luck with your new job! Best Wishes from Kansas Janene Freerksen <janenef@cox.net> Topeka, KS Shawnee - Monday, July 23, 2007 7:27 PM CDT I am so so sorry that it took me so long to write this to you, but I wanted you to know that I was at the Walk back in May and I was inspired by your talk. Thank you for sharing all that you did with us. I hope you are enjoying the 4th and that the summer is going well for all of you. You are all in my thoughts and prayers. Much love, Olivia Olivia Nunez <olivia.nunez@gmail.com> Whitestone, NY - Wednesday, July 4, 2007 5:10 PM CDT looks like a good turnout for the walk. Sending lots of prayers your way. Melissa and hailee http://www.caringbridge.org/az/hailee melissa <angels4hailee@nc.rr.com> westend, nc usa - Wednesday, June 27, 2007 7:05 PM CDT Carolyn, Ifound you through Joey Thompsons guest book. I teach with his dad. I was so thrilled to hear of your success so far. What a hero you are!!!!!!!!! I hope you continue to be such a fighter and remain NED. YOu are a ray o hope to the kids fighing to be cancer free righ now. Kerri Katina <kerri.kratina@ops.org> Gretna, NE US - Saturday, June 23, 2007 8:52 AM CDT Hi, Carolyn! You must be very proud of your Mommy. I know how proud she is of you. I hope her cold has completely gone, and I pray that your cancer will stay gone forever. Mamie was diagnosed about a month after you were, and she was about your age. Her birthday will be June 19. We will celebrate with a balloon release, because she is cured forever in Heaven. www.caringbridge.org/al/mamieadams Mamie's Daddy <george.f.adams@us.army.mil> Huntsville, AL USA - Tuesday, June 5, 2007 9:50 PM CDT I am glad you were able to make to the walk even feeling under the weather. What an amazing thing. Carolyn has done so well at raising money. That is terrific. I am so proud of all of you. All money raised may provide a cure someday and soon..............our hope and prayer !!! I hope I can meet you at the NB conference. Are you going? I am planning on attending. Kim Mease, Jamie Eager and I are driving in a car for 1200 miles to get there. I am so excited about our little "tour" I hope you are going so we can meet in person. I would love to meet you. You are a lady after my own heart.....Well I hope you have a great week and keep us posted as to how things are going. Hope to meet you soon. God bless http://www.caringbride.org/pa/jaredstrayer Connie <tinkerbell53@netzero.net> Boiling Springs, PA - Monday, June 4, 2007 6:06 AM CDT Jen, Thanks for sharing your speech! Well said!!!!! I'm glad to hear Carolyn continues to do well. Best wishes for a wonderful summer. Janene Freerksen <janenef@cox.net> Topeka, KS Shawnee - Sunday, June 3, 2007 11:39 PM CDT Dear Carolyn and Jen, It was great seeing you last weekend and I hope lots and lots of money was made for Alex's Lemonade Stand. The one at our church is Father's Day morning. I look forward to seeing you in a couple weeks. We're planning on flying Corporate Angels, so we'll probably fly home with you that evening. Melinda and Erin Melinda Keenan <brmel1967@comcast.net> - Sunday, June 3, 2007 6:47 PM CDT Hi Jen, Carolyn, and Evan, Sorry we missed you guys at the walk. I flew in that day, and Emily was feeling a bit under the weather from the triple strong G-shots. Your speech was beautiful, and so inspirational. Sending our best and hopes for a wonderful summer. Love, The Adamson Family Diane, David, Emily, and MaryGrace www.caringbridge.org/fl/emilyadamson Diane Adamson <ERDIANE@aol.com> Cooper City, Fl - Saturday, June 2, 2007 4:32 PM CDT Well said! Thank you Jen and Carolyn, and of course all the other walkers! Maria & Alina Dania Beach, FL - Sunday, May 27, 2007 12:30 AM CDT Hi Carolyn and Evan! Happy Friday! Hope the walk was successful and that all went well. Kept thinking about you. Guess what? We have a new addition to our family... Meghan graduated from Penn State last Saturday, and on Monday she adopted "Kiela" (pronouced Keela) - she is a cutie pie - 40lbs, much bigger than our Inky was - but she is a love. She is a AmStaf/Boxer mix, housebroken, and she walks very nice on her leash. Even Victor enjoys her! It's kind of nice having a dog in the house again. : ) We're all going to have to get together with Pat and Linda once they get settled...I even think Kiela will get along with Yoda! hehehee! Give each other a hug for me! love, sylvia Sylvia <smp75@msn.com> Allentown, PA - Friday, May 25, 2007 5:52 PM CDT Hi Jen! Just wanted to stop by and say hi- and look again at your beautiful children. What a blessing! Miss you! Love, Sara and Vic The Hammer's <hammertime311@comcast.net> MN - Friday, May 18, 2007 1:05 PM CDT It was great seeing you guys on Saturday. I'm sure we will see more of you once Pat and I are settled in to our new home. Jen.. have a wondeful Mother's Day! Love, Linda, Pat & Angel Ryan <padwik@yahoo.com> Fenton, MI USA - Sunday, May 13, 2007 8:05 AM CDT Wanted to stop by and wish you a very Happy Mother's Day. GIve those two kiddos a big hug for me. Enjoy your day. caringbridge.org/pa/jaredstrayer Connie STrayer <tinkerbell53@netzero.net> Boiling Springs, PA - Saturday, May 12, 2007 10:33 PM CDT The picture is so sweet...but bittersweet. I'm so glad that Carolyn is doing well. Hope to see you soon. Lisa , mom to Brian and Kevin <ltignor@comcast.net> Montclair, VA - Sunday, May 6, 2007 10:24 PM CDT Hey Jenn, we go back in Early August, sorry we will miss you again! Good Luck with the school thing. God Bless, Love, Ellen and the kids. Scott A., Kathleen, Sean and Heather http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, Ma - Sunday, April 22, 2007 3:00 AM CDT Love the new picture, it radiates happiness, health and brotherly/sisterly love! Maria & Alina - Tuesday, April 10, 2007 8:09 AM CDT Hi Guys, Hope you had a Happy St. Patrick's Day. I was unable to fly to NYC on Friday to see Pat because of the weather. Pat stopped by the RMH after work on Friday for a visit. We will be closing on our house in NY soon! Can't wait to see more of you guys. Love, Aunt Linda & Uncle Pat (and Angel Ryan) <padwik@yahoo.com > Fenton, MI USA - Sunday, March 18, 2007 5:55 PM CDT Happy St. Patrick's Day! Hope you are having a nice weekend! caringbridge.org/visit/quiltsofhope Jaime <aquiltofhope@aol.com> - Saturday, March 17, 2007 10:31 PM CDT Jen and Carolyn, I hope things are going great there. The 70 degree weather last week was wonderful, so this cold front is a shocker. Still, Erin's doing great, so all is good. Spring is coming soon I'm sure. I'd love to see you guys again sometime. Amelia was also told that she doesn't need scans anymore. What a wonderful thing to hear! Take care! Melinda Melinda Keenan <brmel1967@comcast.net> - Saturday, March 17, 2007 6:14 PM CDT Wow!! What a beautiful snow day! Wish we were there, it's too hot for March here...80's ugh!! Happy for no more scans, but hopeful to see you guys soon, on one of your clinic visits. Carolyn continues to look WONDERFUL!! Our best to you all. Love, The Adamson Family Diane, David, Emily, and MaryGrace www.caringbridge.org/fl/emilyadamson Diane Adamson <ERDIANE@aol.com> Cooper City, FL - Saturday, March 10, 2007 5:34 PM CST I hope you are doing well. I love the photo of you guys in the snow. Jay Scott and Alex's Lemonade Stand Foundation <jay@alexslemonade.com> Wynnewood, PA - Thursday, March 1, 2007 2:17 PM CST I just want to say congratulations and God bless Carolyn and her family. Heroes really do come in all sizes, and Carolyn is a true hero! Ginny GA - Friday, February 23, 2007 8:57 PM CST Hi Jen, It's Maria, (Michele's mom). Thank you so much for your guestbook entry and your prayers and thank you for sending me Carolyn's website this way we can keep in touch with each and I can stay updated on Carolyn's progress. Maria <mariaborsch@aol.com> Flushing, NY USA - Thursday, February 22, 2007 8:46 AM CST Your snow day looks better than ours. All we have is ice, but the kids are thrilled to be home. We're off again tomorrow. I hope you had a great Valentine's Day. Love, Melinda and Erin http://www.caringbridge.org/visit/erinkeenan Melinda <brmel1967@comcast.net> - Thursday, February 15, 2007 6:09 PM CST Happy 4 year EFS!!! How many people get *that* wish? Especially for those that know NB kids, this is so huge! Happy Valentines Day too. ;o) Hugs, Lisa, mom to Brian & Kevin <ltignor@comcast.net> Montclair, VA - Wednesday, February 14, 2007 9:56 AM CST Happy Valentine's Day! God Bless, Love, Ellen http://www.caringbridge.org/ma/seanhanson Ellen Hanson <ehanson89@aol.com> Cape Cod, Ma - Tuesday, February 13, 2007 11:31 PM CST Hello Carolyn, Thank you for the beautiful card.. we love it!!! We hope to see more of you once we settle in. We will live close to the beach. You can babysit Chloe too! Hope you have a great Valentine's Day. You own a big piece of our hearts. Much Love, Aunt Linda & Uncle Pat <padwik@yahoo.com> Fenton (soon to by Long Island, NY), MI USA - Tuesday, February 13, 2007 6:49 PM CST I feel bad that I haven't been by your page in awhile.Lots going on here.But that does not mean that I don't think of you for I always do.I do stop by your page to see and read the updates just haven't had time to sign your guestbook. **~ BRENDA~**MY LOVING DAD'S SITE WITH A NEW YEAR ANOTHER ANGEL <brurka@shaw.ca> ****Edmonton~Alberta~Canada****, - Monday, February 12, 2007 2:14 PM CST Yahoo on no more scans!! This is my first time to your site. I came from another site and read your last entry on your trip to New York. XXOO from CA, Cali Ali's Mom Marey <kteachermom@hotmail.com> - Sunday, February 11, 2007 5:22 PM CST Jennifer, thanks so much for sending Joey Thompson's parents an email with some very helpful hints on his stomach issues - we talked to his Omaha Dr. today, and hope we can utilize your suggestions!!! Joey starts round 4 of GMCSF-3F8 (5day) 26 Feb at Sloan, and then three month scans the following week. Holding off on the 1st round of Accutane until he has another GI scope next Friday, 16 Feb. Did Carolyn have stomach or esophogus issues with the Accutane? So glad to hear that your Carolyn is doing so very well - she gives all the NB stage 4 families hope!!! Thanks again for thinking of Joey! Hugs! Grandma Dawn :) Dawn Thompson <dawns.e.thompson@usace.army.mil> Omaha, NE US - Thursday, February 8, 2007 5:14 PM CST So glad to hear the scans went well and you are scan free now. But I also understand the fear of no more scans. Just think positive and take it a day at a time. You are a great role model to us. You give us all such positive thoughts and hopes. Thinking of you. I would love to talk to you sometime about the reading thing. Jared is doing well in school but he has to work very hard and has trouble with putting letter sounds together to pronounce words. He knows individual sounds but the reading thing is something we have been working at very hard but the success is short term and has to be constantly revisited to try to maintain it. It is difficult for him. Any advice would be appreciated. Take care and keep on thinking positive. caringbridge.org/pa/jaredstrayer Connie <tinkerbell53@netzero.net> - Tuesday, February 6, 2007 2:35 PM CST Great, great update, Jen! Happy tears of gratitude for great scans and no more routine scanning! Yea! I just couldn't be any happier for you guys! WE ARE BLESSED. And the reading will come--it will just take some extra time, but it will come! God Bless You!! Love,Sara Vic and Sara <hammertime311@comcast.net> - Monday, February 5, 2007 2:10 PM CST It is so inspirational to hear about your daughter's recovery. I really appreciate all your help and insights as our Catherine goes through many of the same treatments your Carolyn had. Ellen Blair <ellen_blair@verizon.net> Arlington, VA USA - Friday, February 2, 2007 7:58 PM CST Congratulations on your path to normalcy. No scans is a huge milestone. We're so happy for all of you. We know it's been a long and difficult battle, but you fought it with grace and courage. We thought we were done with scans, but our regular onc said we have to go back in April. She did, however, add "nothing to worry about." We'll keep striving to be where you are. Lots of hugs! Candace and the rest of the Masons www.caringbridge.org/co/benjaminmason Candace Mason <candacemas@aol.com> Reno, NV USA - Wednesday, January 31, 2007 12:24 AM CST You and your little girl are such an inspiration! She looks wonderful and I'm so thankful that I read your story. Tricia Toussaint <ptou5@yahoo.com> Delmar, NY USA - Wednesday, January 31, 2007 8:38 AM CST I am SO HAPPY to read this wonderful news! I hope you can get all the school issues resolved and Carolyn begins to feel more confidant. Susan Gentry <sogren@rocketmail.com> Colorado Springs, CO - Tuesday, January 30, 2007 5:55 PM CST Wow, no scans! That's wonderful. You must be so excited. Carolyn is a huge inspiration to all of us, and even though you deal with the late effects of chemo, it's wonderful seeing her and knowing there is a future. I'm so happy for you. I'm a special education teacher, so if you ever have any IEP questions, just e-mail. Love, Melinda Keenan http://www.caringbridge.org/visit/erinkeenan Melinda Keenan <brmel1967@comcast.net> - Tuesday, January 30, 2007 4:18 PM CST That is one of the most beautiful pictures I have ever seen. I am so so so happy for you guys. I love you all Jessica Uze <Jessica.Uze@Oberlin.edu> Arlington/Oberlin, VA/OH USA - Monday, January 29, 2007 9:32 AM CST Thanks for the update and all the great news!!!!! We close on our home on Feb 16. Love you! Aunt Linda, Uncle Pat & Angel Ryan (www.caringbridge.org/mi/ryanc) <padwik@yahoo.com> Fenton, MI USA - Sunday, January 28, 2007 7:19 PM CST YAHOO!!!!! I'm doing the happy dance! Jen, thanks so much for letting us know! love, sylvia xoxo Sylvia <smp75@msn.com> Allentown, PA - Friday, January 26, 2007 10:30 PM CST We're so excited the scans are clear. Go Carolyn! Thanks for making our day. I hope you had a great trip to New York and you managed to have some fun times too! Love, Candace www.caringbridge.org/co/benjaminmason Candace Mason <candacemas@aol.com> Reno, NV USA - Friday, January 26, 2007 4:39 PM CST Wonderful news! Now you can relax for a little while! Melinda http://www.caringbridge.org/visit/erinkeenan Melinda <brmel1967@comcast.net> - Thursday, January 25, 2007 1:28 PM CST Oh.. what wonderful news! Made our day. Talk to you soon. Love, Linda, Pat & Angel Ryan (www.caringbridge.org/mi/ryanc) <padwik@yahoo.com > Fenton, MI USA - Wednesday, January 24, 2007 10:41 PM CST Jen, Joshua will share that kind of good news with Carolyn any day...any place. "Woo hoo Carolyn! Way to go my friend!" Hugs and Cheers for you all from Kansas! Janene Freerksen <janenef@cox.net> Topeka, KS Shawnee - Tuesday, January 23, 2007 10:23 PM CST Carolyn and Jen, Sending our love, and waiting for those great results. These have been a few hard days, sorry we missed you guys (by a week!!) Hopefully, we will see you over spring break. Love, Diane, and the Adamson clan www.caringbridge.org/fl/emilyadamson Diane Adamson <ERDIANE@aol.com> Cooper City, FL - Tuesday, January 23, 2007 9:09 PM CST Jen and Carolyn, I just wanted you to know I was thinking of you and praying for good news! Hopefully you will be home tomorrow celebrating the clean scans. Melinda http://www.caringbridge.org/visit/erinkeenan Melinda Keenan <brmel1967@comcast.net> - Tuesday, January 23, 2007 2:04 PM CST Thinking of you and knowing that "crazy" feeling. Keep you sunny sides up and if that fails to work show them your "moony" side. Hugs, Allison Allison Hantske <ahantske@comcast.net> Annapolis, MD - Sunday, January 21, 2007 8:05 PM CST Jen and Carolyn, Praying for all good results this week. Maybe we will see you at clinic. GOOD LUCK!! Love, Landon and Daniel Holden Landon Holden <Holdensix@msn.com> Alexandria,, VA USA - Sunday, January 21, 2007 4:06 PM CST Hi Jen and Carolyn, Been reading your site and it is wonderful how great you are doing. If we meet up on Tuesday in the clinic, we will be glad to let you sell us some cookies! Best wishes and may your clear scans settle your soul. Have a safe trip. Leann and Bronson Balzac <nanasgirl40@sbcglobal.net> Dallas, TX - Saturday, January 20, 2007 9:58 PM CST Keeping Carolyn and Mom in our prayers. Call anytime if you need to talk. P.S. Close on our home on 2/26. sending much Love and Hugs, Linda, Pat & Angel Ryan <padwik@yahoo.com> - Thursday, January 18, 2007 9:38 PM CST I hate it that even after 4 years we have to worry so much!Sorry to hear about Michele. I didn't know her but I believe I saw her in the clinic in Dec. Hoping all goes smoothly and that you can relax a little. Maria Galletta - Thursday, January 18, 2007 11:11 AM CST Hi! This is Danielle Ryan's Mom. Jenny did post some info on the nb site for me. My sons tumor is located in the skull bone which is pressing against the frontal lobe. My Dr. doesn't care for Sloan Kettering because she doesn't see long term results that are good. I don't know. Plus other people have talked to me about how they don't have a very good bed side manor. I don't know what to do. The chemo isn't working and now we are talking radiation. He is 16 months old and he was considered a low risk pt. but for some reason the tumor in his skull is not acting textbook neuroblastoma. We have a web site here too under Ryanmccormick. Feel free to give me your opinion on this matter. Danielle McCormick <djmccorm2@msn.com> Queensbury, ny usa - Thursday, January 4, 2007 9:41 PM CST Just thinking of you all on this first day of a hopeful new year! So glad Carolyn is in full swing happy childhood days! Caryn and Nick www.caringbridge.org/visit/francafamily Caryn Franca <carynfranca@aol.com> Clifton, Va us - Monday, January 1, 2007 11:25 AM CST Click here to sign the guestbook. | |||||||||||
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