8-8-06
EVERYONE IS OK EXCEPT FOR BURIES AND REALLY SORE,JAYDENS GOT SMALL CUTS OWN HIS LITTLE FEET. THANK GOD THERE OK ,TO HECK WITH THE CAR SHE CAN DRIVE MINE,

THANK GOD ,THEY ARE OK .THE DEVIL LOST AGAIN

8-7-06
Pray for Ashley Tyler and Jayden she was just in a wreck totaled her car.Jay den has small cut feet,has buries all up one leg ,his car seat was hanging partly out the car it broke the Handel on the car seat.Glass was every wher.Ashley shoulder and arm are hurting she has Jayden at hospital getting checked out.pray that they are ok.Tyler seems to be ok right now ,but buries,I don't know what else is going to happen around here now that leaves Ashley with a cancer child and a baby and know car ,she only had insurance to cover the other car.please pray for us.The whole back seat was push up to the front ,all the back and side windows was all broken out.Ithough she was hit from behind but it was from the side .I didnt look good at the car till later i was worried about my babbies,as if we don't already have enough worries .

GOD WAS WITH ASHLEY,TYLER,JAYDEN
76-06
Hello ,well first I want to thank you all for all the snail mail.its great,Tyler loves it he smiled so big when he went to his box he was saying look nanny look ,I got mail ,he said these people love me don't they nanny .of course I told him how wonderful you all are .Thank you to patsy's friend for sending Tyler twenty dollars it will help to get him some school close .He starts school soon .Thank you to the lady that sent the box of stuff for baby Jayden .Ashley and I so much apercates it and she sure needs it.I also want to thank Tyler grandma and grandpa Tucker they came over and took Ashley to walmart and got Tyler a hundred dollars in clothing for school.then took them out for pizza,Tyler is doing ok. Hes still able to eat run and play .but he has started getting choked sometimes own his food .hes still playing with summer who is his min Doberman pincher.shes due babies any day now .He still hurts in his leg and face ,but doesn't complain as much as he did .we haven't heard a thing from the clinic so I guess everything was ok or they surely would have called.Please keep our little man in your prayers he will have so much more that he will face one being the jaw replacement ,it broke my heart when Dr Oneal said that he was at the age that the kids were going to start making fun and calling him names.makes me worry about him starting school.I don't care how much his face turns side ways he will always be beautiful in my eyes,After nineteen surgeries he looks good lot of scars but he looks good.please know that we love and apercate each one of you .The last two years have been really bad for our hole family we couldn't have made it with out God in our life's, you and our church support all the prayers.it doesn't matter if its just a card a email it means so much to all the family's with children that have been through cancer or is still fighting.I pray daily for all these sick children.for the family's that there children have earned there wings .
Last week papa George and nanny took a little road trip,we went to the state park and camped a few days.I felt as if I really needed a break from all this so went.Tyler wasn't so happy but I dint take him.He went to my friend next door and told them he wanted his nanny back right now.he and Ashley jayden did well with out me.It was hard to go without them .Please sign Tyler and the other kids web page it means a lot to all the family's That have sick kids,please pray that God will heal tyler,he will not suffer ,

SUNDAY-JULY23-06

HI IF ANY OF YOU HAVE ANY SPARE TIME COULD YOU MAIL TYLER A CARD OR A NOTE HE WENT TO THE BOX AND CAME BACK,ASK ME WHY HE DOSNT GET MAIL ANY MORE I TRYED TO ANSWER BUT HE DOSE NOT UNDERSTAND,THANKS TO ALL THE ONES THAT DOSE STILL SEND A NOTE ONCE IN A WHILE.GOD BLESS

Friday, July 21, 2006 6:33 AM CDT

Hello, our trip to Charleston went well, we got up at 430, in the morning .got two kids, and ourselves ready, put the kids in car seats started to Charleston First thing Tyler wonted was to eat .so we stopped at burger king got us all a biscuit combo and got Tyler a kids French toast,he takes one bite and will not eat it ,Then he and jayden slept all the way there it took us four hours. but we did get some good news from doctor O’Neal, he told us that there was a new surgery for bone replacement he said that it is new and that they make bone from proteins of some kind ,that he only has done this own two men three months ago .it has never been used on a child. he said that he wants to wait three months watch theses men and if there jaw is successful ,that he will do this for Tyler ,he said that it will not fix his jaw .he still want have hinge .but it will fill his face out and make it round again he said that Tyler is at the age that the kids are going to make fun of him ,[god I hope not ] that it will help with the pain .he told us that if we seen fifteen doctors that they all was going to tell us something different .he also said that Tyler will have to have it done again when he’s fifteen or sixteen .he said that the cancer that Tyler had[in remission now] is so rare that all the doctors have done everything that they know how to do .that they can only try thing and hope that they work , so we get to go back to him in three months, and if these men are doing ok .doctor O’Neal will try this own Tyler ,he said that he would only be in the hospital about a week and that they would only cut his face about two to three inches ,he said that there would be a chance of cutting that nerve and paralyzing Tyler but not a big chance, not like having the jaw replaced. I spoke up and ask a lot of questions this time .so now I have hope to cling to, I always hope things would get better for Tyler ,but the doctors haven’t talked to us like doctor O’Neal did this time. please keep those prayers storming heaven for Tyler and our family .GOD IS ABLE .ok then we went to the clinic to see the cancer doctors .to let them get blood ,this was al full Tyler screamed so hard they stuck him with the needle, had the blood coming and he jerked the needle out of his hand ,so they had to redo it .I stood there with tears in my eyes wanting to grab him and run ,knowing that he must have this done ,[I was standing there with jayden] just think of his mom having to hold him down that way. We only know that there was something wrong with the blood last time so we want know anything about this for a few days, Tyler gets in the car and he starts to scream .he said I hate this place he said aim not ever coming back and you cant make me. He was crying so hard. Well we started home, and Ashley starts hurting really bad from having the baby so we had to stop and pick up some things for her. her doctor has her own medication and may have to do a DNC in a few days. If she’s not better. so please pray for her also. our trip was long trying to do it all in one day but we just couldn’t afford to stay up in Charleston .this was so stressful., but god has been with us ,he has made a way, I always just keep my faith and some how it works out .the gas along was sixty five dollars there and back. We ate the cheapest place we could so that helped out .the chemo has killed the taste buds in Tyler’s mouth so he will only eat a few things, he will eat cheese pizza, but no hamburgers or fry’s no baked pot or anything that is good for him .we try but he spits out and says its nasty I will never give up own Tyler I will fight till my dieing days to save him. They need to learn more about Alveolar Rhabdomyosarcoma , this is sad ,doctor O’Neal said that Tyler will never be perfect but that he can fix his face to be better ,Tyler needs some big miracles. When you say your prayers say an extra one for Tyler and his family .Thank each of you that keep sending snail mail Tyler still looks the mail each day he just loves getting cards .please pass Tyler’s page to others so that they can pray for him we count each time that his guest book is signed a prayer for Tyler, it has been singed over sixty five thousand times .that’s sixty five thousand prayers , and god has heard all of them that’s why Tyler is still with us .there is a poem own guest book aim putting it own the front page of his guest book. Nineteen surgeries and still wining the battle .

I watch you playing,
Without a care.
It's hard to believe
The cancer is there.

You look so bright,
So happy and well.
If someone new met you
They couldn't tell.

Your strength is amazing,
Your courage so strong.
You've fought this disease
So well for so long.

It's from your strength,
that I draw mine.
I know you will come through this,
It'll just take time.
Carry on smiling,
I will too.
Through the hard times
I'll carry you.

You are my world,
The air that I breathe,
I know in my heart
You'll never leave.

Keep strong my love,
The battle has begun,
But with your strength,
It will be won.

monday, July 17, 2006 9:20 AM CDT

We are heading to Charleston Thursday. please pray that we have a safe trip ,that there’s nothing really bad wrong with Tyler’s blood ,please pray that the surgeon will have the right answers, pray that Tyler stays in remission and that what ever is planed about his jaw ,that he will not suffer,
GOD HEARS YOUR PRAYERS,PLEASE DONT FORGET TO SIGN TYTYS GUEST BOOK

july 7th- 2006
Hello, everyone, things are going pretty well,my arm and hand is doing alot better,jayden and Ashley are doing really good.Jayden is so sweet,he is sleeping and eating a lot that’s about all you can say about him for now, Tyler is ok he got out yesterday with a shovel and helped papa plant two trees, He was playing all day he didn’t even say he hurt at all yesterday. Day before that he went swimming and believe it or not I looked out at the above ground pool and his daddy was swimming with him .Tyler was having a really fun time. I don’t think his daddy had been in the pool with him before but it was nice to see him playing with Tyler. Tyler cant play a lot with summer she has gotten so hipper that we have to keep her in a fence.he goes out to see her each day .he loves that dog.We will be going to Charleston to see the jaw surgeon on the 20th .then to the cancer doctors for blood work, sense there was something wrong with his blood last trip. we are going to try to make it all in one day we will leave about 430 that morning try to be there buy 10,then drive home after he sees both doctors its four hrs there and four back .please keep praying for Tyler ,just because he’s in remission doesn’t mean that this is over .he has so many compactions .his little face is getting worst each day , and his little tong is sticking out side of his mouth when he smiles and some time when he’s talking, his face is getting flat on one side ,because that side of the face has no hinge or jaw bone and is not growing with the rest of his face . his little leg still gives him pain .but I know that god is hearing all the prayers and that you all have helped Tyler and our family so much .we thank each of you . Please keep praying and signing Tyler’s web page, sending snail mail, he looks our box each day. It means a lot to our family. I can’t spell to good but I sure am doing a lot of praying.I pray each day for all the caring bridge kids. unless you have a sick child you cant know the hard ship the tears, the heart ace that you have each time the child has to see his cancer doctors and all the needles, I feel so sorry for all the families that don’t have there babies, and I cant understand why, I hurt for each of those families pray that they will get some peace in there lives .losing a child has to be the worst thing ever. Tyler is still eating but gets chocked on some of his food .we try to get him soft things to eat .he loves pizza, doesn’t eat the top crust.he loves the easy Mac microwaveable macaroni, that’s easy for us to fix him. he likes pizza bites , he eats gummy bears and worms , and loves to suck own star burst candy ,that’s just about all he will eat ,the doctor said that the radiation and chemo had killed some of his taste budes.he will not eat cho at all ,he will eat banana pop sickles but wont eat ice cream. Tyler will not eat any kind meat or fry’s or potatoes, corn or any thing that is good for him ,he says its nasty and if he tastes it he spits it out .well I will say bye for now we love you all ,

one more thing I forgot its not that we cant find a surgeon there are plenty of surgeons out there that could do Tyler’s surgery its that we cant take him out of state medicate wont pay.medicate said it can be done in sc.the surgeons here are saying that they will most likely paralyze Tyler’s jaw they are worried about cutting the nerve in his face,we ask how bad this would be and they said real bad .it couldnt ever be fixed. and they wont say that they cant do the surgery, doctors out of state wont paid , if we had money or insurance we could get the best doctors .it seems so unfair so just keep praying ,this is a long hard jorney for tyler and his family

Friday, June 30, 2006 7:42 AM CDT

Hello ,This has been one heck of a month my arm and hand are getting better.Tyler had his scans.They were clear,thank God for that,something was wrong with the blood work so we will go back to Charleston on the 20th to repeat.He is still having jaw pain and some leg pain but he is able to play and just be a little boy.we will also see the jaw surgeon about his jaw.It is pulling over to the side more and his toung is on the side when he sticks it out,I caught him looking at his jaw yesterday. keep praying for Tyler he still has so much he will have to go through Tyler s little brother Jayden is here and both mom and baby are just fine.We will travel now with two instead of one [goodness].I want to thank each one of you that have been sending little gifts and snail mail to Tyler he loves the mail and it makes him smile he looks the mail box each day.Thank you Savannah for updateing Tylers page when we need you,you have been wonderful.you all have been wonderful I don’t know what we would have done with out you.God bless and thanks to each of his angels that send angel mail.I want you all to no that it is apercated and needed. Don’t know when Ashley will be able to work but soon I hope.I was mad when I found out ashley was having another baby.wondering what in the world she ment,Tyler was all ready sick,what in the world was she thinking.I want you to know that this is the sweetest little baby and I all ready love him so much.God has sent him for reason.I will be there for this little boy just like iam always there for Tyler and Ashley.pleaase keep all of us in your prayers.Tylers journeys are not over. Please keep signing tylers web page each time as a prayer for Tyler.I know that in the last years that you all have loved and prayed for Tyler and that God has heard those prayers.we love each of you.Your kindness has helped Tyler to heal.I told him that he was my boy and he would always be.He looks at me and says what about my brother nanny.HeS such a loving little boy and he loves to share.He will get a toy and try to give it to any child that come to our home.There are new pitcres Tyler ,Jayden ,Ashley and Richie in photos thank you all for being here for us

Tuesday 27th 2006

Its Savannah Again With Good News!
Hunter Jayden Tucker Was Born At 10:49Am This Morning Weighing 7 Lbs
She Said Baby And Ashley Was Doing Good He Was 3 Weeks Early. Just Keep Them In Your Prayer's That They Both Stay Good And Healthy So They Can Come Home Soon.. Congart's Ashley And Richie Love Savannah

Tyler And Hunter Jayden Tucker


I Got Another Picture This Morning Thought I Would Share With Yall He Is So Cute



UPDATE FOR JUNE 16TH 2006
Hello Its Savannah Again.. Darlene Called Me And Ask To Update The Page For Her… Tyler’s Scan’s Came Back Clear Thank The Lord… But Something Showed Up In The Blood Test! They Thing Something Is Wrong With His Thyroid.. She Said The Doctor Said It Could Have Been From The Chemo And Radiation .. He Has To Go Back July 20th To Have More Test Run… He Will Also See Dr. O’neal On The 20Th That Is The Jaw Dr.. So Pray They Can Get Some More Info Or Get Help Getting His Jaw Fixed. Darlene Was Not Able To Update She Said She Went To Her Dr Over Her Hand Where She Fell At The Benefit Sale Her Hand Is Fractured. So She Is Not Able To Type. Just Pray That There Is Nothing Wrong With His Thyroid.. Savannah



Hey Well its been a rough weekend, we left Greenville for Charleston on Thursday. Arriving at one in the morning scans was planed on Friday at eight. We were to be there at seven fifteen. Tyler was put to sleep and we sit all day, then went to see his cancer doctors, he was wore out, but really good, we will not hear from scans for a few days, they were making app with his surgeon about his jaw and it hurting .we were told that the doctors that sees Tyler was not there and the new doctor wouldn’t know what we were talking about.
Gee I thought they all was suppose to know about him, any ways, we didn’t find out a darn thing we didn’t all ready know .we knew that Tyler’s jaw hurts and that he needs a jaw replacement, we knew that he was still having leg pain .what we wont to know is who the heck is suppose to be going to do his surgery and when, and why he hasn’t got some taking care of what needs to be done about his jaw, please keep praying for Tyler. He’s got a lot to go through .he has lots of compactions from the cancer then we took Tyler to chucky cheese with flash from courage kids in Charleston, he had fun , then went to a wedding rehearsal .and then a wedding on the beach ,my granddaughter Kelly got married. then packed and got home Sunday ,only to have to take Ashley to the hospital she was admitted .because she has a high blood presser ,said they may have to take the baby . She’s feeling much better, any one that wants to send her a card she’s at Greenville Memorial 701 Grove Road Greenville, SC 29605 United States. Please keep her and baby jayden in your prayers. So we have been sitting at Greenville hospital
I WANT TO THINK OUR CHURCH MUMBERS FOR TYLERS BENEFIT, IT WENT GREAT .AND WAS VERY MUCH NEEDED, IAM STILL NOT OVER MY FALL MY LEG IS FINE BUT MY ARM REALLY HURTS .PULLED LIGMENTS IN IT .THANK YOU ALL FOR LOVING US WE THANK GOD EACH DAY FOR OUR CHURCH FAMILY, AND OUR WONDERFULL PREACHER AND HIS WIFE. ALSO THANKS TO MR TOM MCCALL FOR PAYING FOR OUR ROOMS .IHOPE THAT GOD SENDS YOU MANY BLESSINGS.

Tyler is in speech therapy session and therapy for his leg
Please pray that his scans are clean and that we find a doctor that can do his surgery with out paralyzing Tyler’s face.Tyler is in speech therapy session and therapy for his leg

Thursday, May 18, 2006 7:15 AM CDT

Update For June 5, 2006

Im Gonna Update For Darlene.. She Called Today And Ask Me If I Could. She Said The Benefit Went Great Said The Lord Was With Them… She Fell At The Benefit And Got Hurt Pretty Bad. So She Can’t Get Online So Lets Pray She Will Get Better Soon.. Tyler Is Still Having Some Pain’s In His Jaw. She Said He Got Up In Her Lap And Said Nanny My Jaw Hurts And She Said Where’s It Hurt And He Pointed To Where The Bone Is Missing He Said I Wish I Could Just Get A New Bone. There Leaving Thursday Night For Scan’s. Scan’s Are On Friday There Gonna Have To Put Him To Sleep For Them.. Pray That Scans Come Back Clear. Darlene Will Update More When They Get Back. Just Pray They Have A Safe Trip There And Back
Love Savannah


Hello
Things are still going good here, Tyler’s doing great .he has been for a few months now .thank god. He will go back to musc of Charleston on the 8th and 9th of June, to have scans. He has to be put to sleep do his scans, so it’s an all day thing. He will go see his Oncologist, and to get his blood work, more needles he’s not going to like that. we are going to talk to them about his jaw ,its getting a little worst each day ,we just think god he can still eat ,but they are going to have to do something before long .
He still has pain but nothing like what it was,for some of you that don’t know Tyler has had 19 surgeries .he has been cut from ear to ear ,he has lost a lung to cancer .he has had the fibula bone taken from his leg and put in his jaw ,that bone has died and Tyler has no jaw bone or hinge to put one .the doctors feel sure that when they do surgery to replace the jaw that they will hit the nerve ,this would be really bad ,it would paralyze Tyler’s face ,so they have been holding off as long as possible but in time he will get where his face will be sideways and he wont be able eat and it will have to be done .so please keep storming heaven for Tyler. He is in remission, but that don’t mean that he is free of cancer, it could be back at any time. it has left him with so many compactions. It has been a Nightmare for the last three years .please say prayers for all the families that have not been as lucky as us and have lost children to this disease. My heart truly breaks for each and every one of them and for all the families still fighting. Hug your children and let them know how much you love them as life is so precious and we know that first hand. You must make each moment with them a memory that you will have forever. When someone in a family has cancer,The entire Family has Cancer. It is so hard when it is a child. If it has never happened in your family"Thank God" This is a MONSTER. I do not understand the reason,but God does and we will never doubt His Will. We know there is a reason and we will know some day. For now Tyler’s just being a little boy and playing with his dog summer, I thank god each day for Tyler. if we have to do this over, he’s worth it all. I would be right there .baby Jayden is not due till July 7TH th but Ashley is having some trouble ,she’s having to go to the doctor twist a week to get motored ,he’s wanting to come out early ,looks like I may be taking Tyler to Charleston .with out Ashley .that will be a first ,we will just have to pray about this ,and pray that Jayden and Ashley will be fine.
our church is doing a benefit for Tyler June 3rd .There will be a carnival, hot dog sale bake sale and a small yard sale, car wash, please ask god not to let it rain that day. All the money will be used for travel and food, when we have to take Tyler to Charleston, if any of you are in Greenville come join us at new life Baptist, the people are wonderful And will make you feel at home.

Tyler is in speech therapy session and therapy for his leg
Please pray that his scans are clean and that we find a doctor that can do his surgery with out paralyzing Tyler’s face.

Friday, May 12, 2006 8:43 PM CDT

HEY ,ITS NOT OUR TYLER THAT PASSED AWAY
OUR BABY IS STILL WITH US.WE ARE GETTING EMAILS SOME PEOPLE THINK IT WAS OUR TYLER ,IT WASNT OUR LITTLE MAN
IT WAS Tyler Gardiner’s 3 1/2 year fight against leukemia

Tyler is doing ok .we are still praying that we can find a doctor that can do his surgery without hitting a nerve, his little jaw looks flat on one side it is getting worst he has only had a little pain in the jaw. His medications are helping with that .he is wearing his brace on his leg and it still hurts him at times. He still falls .his scans will be June 9th .please pray that they will be clear. I worry so much about him. He gets short of breath, when he’s playing; he lost part of a lung to the cancer. Tyler weighs forty two pounds
He will be six in October .he looks so skinny .he eats real good .please keep Tyler in your prayers he has a lot to go through yet. Our church, at new life Baptist is doing a benefit for him June 3rd, to help us with gas and food when we have to go to musc hospital in Charleston. They are having a carnival and a Christian singing, hot dog supper, bake sale we have had a lot of stuff donated to help with the benefit .even had helium donated .but now we are looking for some one to donate a lot of balloons .or money to buy them. hopeing to get some with his name own them . I also want to thank you all Tyler’s angels for the prayers for your love and for being with us through all this, for all the snail mail. If you could just see his smile when he gets mail .He’s really our angel here own earth. I make sure I tell him each day that I love him, and give him a kiss and a hug .he’s spoiled rotten ,and I didn’t spoil him , his mama and papa George did .please keep storming heaven for Tyler I know that god has heard your prayers ,Tyler is one of gods a miracle.
Ashley went to the doctor today and they said her blood purser was way high, five tubes of blood was taken, they said that they may have to take the baby; she still got two months to go yet. Please pray that she and Jayden will be ok. Tyler’s little brother will be Hunter Jayden, I really like that name and Tyler can say Jayden real well.
THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY

THERES IS A NEW ANGEL IN HEAVEN TONIGHT TYLER GARDINER, EARNED HIS WINGS TODAY, please keep his family in your prayers. www.caringbridge.org/oh/tyler,I knows they are hurting right now. I can’t even imagine
The pain of loosing your child

Friday, May 5, 2006 4:10 PM CDT

sorry about all the online casinos crap on tytys page .some one just don’t have a heart at all ,I will get the pass word off soon as possible , caring bridge is going to try to track the ip address. Tyler is still doing good ,he is having a ball in the pool with his cousins ,it is so good to see him feel good and want to play ,he told us a couple of days that his jaw was hurting ,but he hasn’t said any more about it ,we haven’t heard a thing from musc ,they were suppose to call and tell us what doctor would be looking after Tyler’s jaw but haven’t called us back .he’s still able to eat, so that’s good news .he is doing better with the leg he’s seeing a doctor here in Greenville about the leg now ,he still wears his brace ,and still has some pain . he gets out of school in one more week .but will still have therapy. he will miss school aim sure he loves it there ,every time I look at Tyler I can see a little change in his face .one side is getting flat , and has a sharp piece of metal that is sticking him ,Ashley said its because he’s jot a two year olds jaw and a six year old s head .please keep praying for Tyler ,he s still got so much he will have to go through ,he will have to have a jaw replacement and a hinge ,and aim praying we will find him a good doctor to do it .i know that a lot of you are tired of hearing this but its all I can think of ,I wonder what the future holds for my sweet little Tyler .he will have scans June the 9th .please pray that they will be clear .Ashley is suppose to have jaden ,on the 7th of July .please keep them in your prayers also She’s doing really well but has gotten really big with this one. Thank all of you that Keep sending cards to Tyler he loves it. Please keep signing his guest book and us all in your prayers ,i don’t know what i would do with out you all you have been here for me and listened and cried with me ,may god bless each one of you, I have all the children in my prayers ,I know what they go through .
Please pray for the Shannon’s, riches cancer is back and growing in two spots http://www3.caringbridge.org/nv/richie/

Friday, April 21, 2006 6:19 AM CDT

hey ,sorry about all the online casinos crap on tytys page .some one just dosnt have a heart at all ,i will get the pass word off soon as possiable , caring bridge is going to try to track the ip address.soon as they are done i will update the page ,god bless each of you ,we love you all keep praying for tyler please


Good Day to all, caring bridge has split tytys guest book .Because slower internet can’t get own, so please keep signing .we count each time as a prayer and it’s over 64000, prayers right now. I believe in prayer, I believe that because of you all storming heaven for tyty is why he’s here now. Tyler is ok, he was hurting in his leg yesterday, but took his medication. Was feeling better in about a hr. He is walking pretty well. Still falls, he is doing well in school, and in therapy felt badly yesterday because i couldn’t understand what he was telling me it took him at least five times before i knew what he said. He wanted to help wash the dog. He goes to the leg dr in two weeks; he will have scans own june 9th in Charleston musc hospital. Then he will also see the cancer dr own the same day, we are going to talk to them about his jaw.
For all that doesn’t know Tyler has had nineteen surgeries. his cancer was in his jaw at first .He was cut from ear to ear ,he couldn’t breath so he got a trach ,he also got his mouth wired shut ,a bone was taken from his leg and put in his jaw ,they didn’t hinge his jaw ,now the bone has died and he has no jaw bone and no hinge ,the doctors don’t know how to fix it with paralyzing Tyler so we are holding off as long as possible hoping a great dr will help Tyler .but Tyler only has medicate , it will not pay for a doctor out of state ,told us this could be done in sc, His mom cant work and cant pay for this she’s twenty three.
Tyler’s cancer went to his lungs and he lost part of one lung, makes it hard for him to breath some time. He has asthma. He spent all of 2003 in the hospital but three weeks.The surgeries are just two many to mention all of them he’s had a feeding tube .Chemo and radiation ,he has hardly any teeth and all the roots are dead own the four or five he has ,they will be out soon and he will not get any more teeth .they cant in plant because he has no jaw bone .He cant wear plate no jaw bone to hold it. He looks good,he’s gods miracle, his face is pulling over to one side but he is still eating ,he will start having trouble and it will get worst as he grows ,He has been 42 pounds for a year now, Tyler has a lot of scars, he’s a strong trooper .It feels so good to see him play, Tyler looks good and plays just like any other child ,just to look you wouldn’t know all this is wrong with him ,He is in remission and has been for two years and three months but he has many compactions ,he loves all the mail and the little gifts sent to him ,thank you all so much AND I WANT TO THANK GOD FOR ALLOWING ME TO HAVE MY TYTY TO LOVE,HES MY HEART Please keep signing his guest book and remering us all in your prayers ,i dont know what i would do with out you all you have been here for me and listened and cried with me ,may god bless each one of you,i have all the chrildren in my prayers ,i know what they go through .

Monday, April 10, 2006 8:25 AM CDT

TYLER HAD A GREAT DAY TODAY
new pictures in photoes
Hello everyone
Tyler is still doing great ,he’s playing with summer every day , and eating well ,he is still having some pain in his leg but his medication is helping with that ,he is going to therapy and school ,he did well with the dentist taking the teeth out .they gave him a lot of medication and he just lay there and watched TV he didn’t even have to be strapped down ,please keep visiting his web page and singing his web page it means so much to our family ,to know that you all are there and how much you care .Tyler’s little face pulling more to one side, but it isn’t hurting him, and he is still able to eat, so that’s a good thing . Please pray that we will find a doctor to do Tyler’s surgery that want paralyze him. Some one that will know how to give him a hinge and a jaw bone, That some one will contact us, that Tyler doesn’t have to live his life like this, as he grows it will get worst, There have been a lot of emails and letters sent, but we haven’t gotten any answers, please keep praying that his cancer stays in remission, he’s not out of the woods with that yet. he still has three more years before they will consider he’s cancer free ,the doctor said after five years they consider him cancer free ,he will have to see doctors the rest of his life .Tyler has been in remission two years three months ,and we thank god every day for that .i meant to tell you all that he is doing lots better with his breathing this has been a long journey and we have a while to go yet ,we keep our faith in god and know that, through god all things are possible and we know that god can find the right doctors for tyty ,that he can cure him .It feels so good to see him play and feel good ,to see him smile .you all have been wonderful you have been with us the whole two years thank you ,we love you all Tyler has scans on the 9th of July. Please keep praying that they will be clear. Tyler still loves the cards that are sent to him ,
thank all of you that has sent easter candy and gifts to tyler

Monday, April 3, 2006 9:49 AM CDT

Hello
Tyler has had a good week .he is going to the dentist today to have a little surgery .they are getting another tooth out .he only has about five left in his mouth, and they will be coming out because the chemo ate all the roots, so Tyler will not have any teeth .they are now saying they cant implant any for him. We don’t understand this. he has no jaw bone or hinge .haven’t heard a thing from the jaw surgery doctors I don’t think they want to fix the jaw ,I think they messed up and don’t know how to fix it. he will go to the leg surgeon tomorrow .to have the leg checked .it still hurts but it s not as bad as it was, he has his brace and it is holding the foot straight .so he is able to walk and even runs too what a strong little trooper he is .Tyler is still eating ok .but he will only eat a few different things .he loves gummy worms .and pizza and he likes spaghetti. we ask the doctors about his eating and they said it was because the chemo and the radiation killed his taste buds , Tyler will not have scans till jun 9th ,please keep praying that the cancer stays in remission ,Tyler has many compactions from the cancer. he has trouble with his breathing some time because they had to take part of his lung .he cant eat hard things ,his jaw is drawing to one side ,and his leg has really put him through a lot of pain . He is in therapy. TYLER NEEDS A NEW JAW AND HINGE, BUT HE NEEDS SOME ONE THAT CAN DO IT SAFTLY
THANK YOU PAT FOR NOT GIVING UP OWN OUR STRONG LITTLE TROPPER
THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY
Ashley is doing fine and so is the baby that she will be having in July
Our church is going to have a concert and cake and hot dog sale to help us with traveling expenses it will be jun 3rd .the king brothers 1611 will be one of the singers all the money will be put in Tyler’s account .because we know he will have the jaw surgery we just don’t know when ,keep storming heaven and ask for a miracle for Tyler that we will find someone that can do his surgery with out hitting his nerve and paralyzing him .maybe god will just hill him .
Once again thank you all for snail mail Tyler still loves getting the cards and will tote them around and then brings to nanny to put up we have every card and letter.thank everyone that helped get his wagon

Friday, March 24, 2006 4:52 AM CST

new photoes

Tyler is getting his wagon ,thanks to
Courageous Kidz - manger Debbie [flash]
and Patricia Biksacky. Thank you for loving tyty.

Hello well its been one heck of a week around here. Tyler and I both have been really sick .I had the flu, it put me in bed I ran a temp and wasn’t able to get up for about four days I feel better now but have been running a temp .Tyler was taken to see Dr blood worth here in Greenville .he has asthma, we already knew he had asthma IT is acting up , he is coughing his head off has to be giving breathing treatments every day , because part of his lung being taken out from cancer, it gets hard for him to breath ,when he gets sick he also has a flu virus, his little leg is hurting some. Am praying Ashley doesn’t get it she’s doing ok. Looking forward to the new baby in July his name will be Hunter jay den.
I have written a lot of letters trying to get someone to help Tyler with his jaw but know answers www.miracleworkerstv.com five times .I pray that we will find some one before he gets where he cant eat, his little face is still going to one side .but all I can see is one of gods miracles .Tyler got his brace on the twenty first ,to help hold his foot straight .its small and really looks well own him. He sees the dr here about his leg own the 20th of April. His scans are coming up in June on the 9th .please keep praying for him he has a long way to go yet. Please pray the cancer stays in remission. I church is going to do a cake sale and hot dog sale with a caravel .benefit for Tyler June the 3rd .to help out with travel expense. Thanks to REV Ronnie Powell, and all the people at new life Baptist that have stuck buy us. Prayed with us and been at the hospital with us. Aim so proud to be part of there church family .we are still getting some cards and angel mail thanks to all that send it .Tyler still loves the mail . he doesn’t see much that is own the computer/he can hold the mail that comes.
TYLER NEEDS A NEW JAW AND HINGE, BUT HE NEEDS SOME ONE THAT CAN DO IT SAFTLY
THANK YOU PAT FOR NOT GIVING UP OWN OUR STRONG LITTLE TROPPER
THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY

Thursday, March 16, 2006 3:59 PM CST

hello everyone .i will update soon as i can, i have the flu and i couldnt even get up for three days i selp.


Hello
Tyler is still doing ok; he’s going to school, and to therapy. He is still having some leg and jaw pain. He’s still eating well. He goes to get his brace, Tuesday. Every one here is sick with flu virus .Jessie tiffany and Jeremy, have all ended up at the hospital er, this week. they have really had a bad case of flue .I sure hope Tyler doesn’t get it .I want to thank pat for sending Tyler twenty dollars to go own the wagon he wants so badly. We now have forty dollars the wagons 98.00 with wood sides own it .He hates that wheel chair. Refuses to ride in a stroller says he’s know baby. He can walk but gets tired and his leg gets to hurting. So we have to tote him .Tyler weighs forty pounds now. Ashley can’t tote him pregnant so guess who gets to tote him. You all have been just wonderful angel Sharon sends him mail every week and angel Kim sends a lot to. Tyler loves getting the snail mail so much, if you could just see that smile own his face when he receives mail he even smiles if it’s a card or just a sheet that a child has colored for him. Any of you that would want to mail a picture of your child to Tyler we would love to make him a picture wall. Thanks to the ones that have made quilts, throws for Tyler he loves them and uses them. Please keep praying for Tyler and signing his guest book it means a lot to us, God has been so good to Tyler and his family. We know that prayer has kelp Tyler here with us. He has so much yet to go through .He made Ashley cry he said mommy please don’t make my new brother have jaw surgery when he gets here. I don’t want him to hurt. Don’t make him go see the doctor. How sad. Tyler’s friend http://www3.caringbridge.org/nv/richie/has been real sick and back in the hospital please keeps him in your prayers. He has the same cancer Tyler had.
This was email from Patsy (patskyspad@yahoo.com) is writing Oprah for 4 months now-every day. And Dr Phil and Robin for a month. People ask me how I feel-never getting an answer. I say I'm not giving up until it’s too late, and you decide to go with what you have. I hope you hold on tho.They don't know how to do the hinges-so how will he use that jaw, and why can't they put an artificial jaw in.
The only way i know to answer is that maybe because they are a training hospital. Tyler will have to have the jaw replacement. we are holding off till he has to. As he grows his face will get worst and he want be able to eat. Tyler wasn’t expected to live when he had the last jaw surgery. They said that it was by the grace of God that they missed that nerve in his face, he was cut from ear to ear and his face was peeled up. They put the filba bone from the leg,[messing leg up ] in the jaw they left un hinged, planed going back for a hinge but the filba died and now they have no place to put the hinge, we ask about the artificial stuff, they say that the jaw is the one place that after it has had chemo and radiation that will not take any thing except a bone from Tyler’s body. I worry about his lungs he lost part of one, both had cancer in them
TYLER NEEDS A NEW JAW AND HINGE, BUT HE NEEDS SOME ONE THAT CAN DO IT SAFTLY
THANK YOU PAT FOR NOT GIVING UP OWN OUR STRONG LITTLE TROPPER
THIS IS STRESSFUL,EMOTIONALLY,FINANCIALLY




WWW.CARINGBRIDGE.ORG/SC/TYLERTUCKER

FRIDAY, March 10, 2006 5:03 PM CST

HELLO EVERYONE
SHORT UPDATE TO LET YOU KNOW THAT TYLER HAS HAD A GREAT WEEK HE HASN'T HAD A LOT OF PAIN AND HAS BEEN PLAYING OUT SIDE WITH SUMMER .HE FALLS SOME ,BUT IS WALKING,HE WANTS A WAGON SO WE CAN PULL HIM AROUND THE BLOCK HE SAYS HE DON'T WANT A STROLLER HE'S SAYS HE'S NOT A BABY.HE HATES THAT WHEEL CHAIR.HE CANT MAKE IT ALL THE WAY AROUND THE BLOCK WALKING.WE HAVE TO TOTE HIM BACK, TYLER WILL HAVE TO WAIT TILL WE CAN AFFORD ONE.MAYBE WE COULD HAVE A YARD SALE.HE WILL GET HIS BRACE ON THE 21ST OF THIS MONTH.THERE'S NOT A LOT TO TELL THINGS.HIS JAW IS ABOUT THE SAME.PLEASE PRAY FOR HIM HE'S GOT SO MUCH TO HAVE TO GO THROUGH,HE'S A STRONG LITTLE BOY,THANK YOU ALL FOR THE SNAIL MAIL AND THE PHONE CALLS WE LOVE YOU ALL

Saturday, March 4, 2006 5:03 PM CST
WE ARE BACK HOME TYLER IS DOING OK. DR GROSS SAID THAT TYLER WILL HAVE TO HAVE ANOTHER BRACE,THIS WILL BE HIS 3RD ONE ALL DRIFFRENT.HE SAID THAT TYLERS FOOT WILL HAVE TO BE IN A BRACE FOR YEARS.IT WILL NOT GET WELL AND WILL BE SIDE WAYS IF HE DOSNT WEAR A BRACE.HE IS WALKING BUT WITH A BIG LIMP.TYLER IS HAVEING SOME LEG PAIN BUT NOT LIKE HE WAS IT IS BETTER.HES JUST SUCH A TROOPER.THEY GOT HIM A DR HERE IN GREENVILLE TO LOOK AFTHER HIS LEG THANK GOD FOR THAT IT WILL STOP SOME OF THE TRAVELING.WE WILL STILL HAVE TO GO TO THE SURGEON ABOUT HIS JAW AND GO FOR SCANS,CLINIC VISTS.IN CHARLESTON AT MUSC HOSPITAL.THE KNOT HAS GONE DOWN THAT WAS OWN HIS FOOT.THANKS TO ALL THE PRAY WORRIERS, PRAYER WORKS, TYLERS LITTLE FACE CHANCES SOME EVER DAY.I PRAY EVERY DAY FOR A MIRACLE FOR TYLER.THAT PAT OR SOME ONE WILL GET SOME ONE TO ANSWER HER EMAILS.I PRAY THAT TYLER WILL GET SOME ONE THAT KNOWS WHAT HES DOING TO REPLACE HIS JAW AND REPLACE HIS HINGE IN THE JAW AND GIVE HIM SOME TEETH.TYLER IS IN SPEECH, AND LEG THEROPY AND GOES TO SCHOOL.I ALSO WANT TO THANK ALL THE ONES THAT SENDS SNAIL MAIL TYLER JUST LOVES GETTING THE MAIL.THANK YOU craftygramginger FOR TYLERS NEW QUILT.HE LOVES IT.PLEASE PLEASE KEEP PRAYING FOR MY LITTLE TROOPER HE NEEDS YOUR PRAYERS
This child is a 'fighting survivor of cancer', having endured many! 19 surgeries, some resulting in disfigurements...please take a moment and lift him before the Throne...thank you, Joy Nunez.
PLEASE KEEP STROMING HEAVEN FOR TYLER HE HAS A LOT MORE SURGERIES, LONG TRIPS, AND HEART BREAKING THINGS THAT HE MUST GO THROUGH.

monday -20-06

marc-2-06
we are own our way this morning to take tyler to charleston ,his foot is side ways ,gotta go see what they want to do about this ,Ashley and i both talked and cryed yesterday about how fast that tylers face is changing and pulling over to one side ,please keep praying for our strong little trooper
god hears your prayers

this was a email we recived
Young 5 year old boy, Tyler, is suffering complications after an agonizing leg surgery...this child is a 'fighting survivor of cancer', having endured many! surgeries, some resulting in disfigurements...please take a moment and lift him before the Throne...thank you, Joy Nunez. JoyLNunez7@msn.com


Hey .Tyler is doing ok .we take him to charleston on the 28th.He seems to be doing better and is walking with the air cast on but when we take it off he will not walk .The prayers are working so please keep storming heaven for tyler .Thank you all for the phone calls and the snail mail.I WILL GIVE LONGER UPDATE SOON AS WE GET BACK .
2-23-06
We took Tyler to see the surgeon here in Greenville today He did x-rays said that because Tyler has no filiba bone in his leg it is going to take a lot longer for him to heal .he said that Tyler still needs support own his leg so it want hurt also if he’s not walking by Monday that he’s going to need be own a walker, for a while .the cast was supporting his leg and he wasn’t putting all his weight on it when cast was removed it hurts when he stands or try’s to walk ,I will up date more soon as we see if he’s going to have to have a walker. We can’t even get him to try to walk he says it hurts.we go to charleston on the 28th to see the leg dr.please keep stroming heaven for tyler pray that he will walk soon.also keep praying about reconsturction of his jaw,we are not sure when but we know it will have to be done ,what a trooper this child is


Hi short update, Tyler s cast came off Friday. Four days later, he still will not walk on his leg. says it hurts when he tries to stand. He ask for his wheelchair last night. Please keep praying for our strong little trooper has so much yet to go through. we are going to call the DRS in a few days if Tyler is not walking. Another trip to Charleston will be on march 1 unless we have to go sooner.


Saturday, February 18, 2006 7:51 AM CST
Hello, Friday stared off to be a really bad day we went out to get in the car to head for Charleston to get Tyler’s cast taken off and to see what they would say about his leg.The car had been shot during the night two times.George went around the house and a window had been shot.we had to call the police out.Knowing there was not anything they could do so we got a case numder.We have one of those government housing at the end of our road.There are some really nice houses They have gotten a lot of teens.Any way we headed own our trip Took us four hrs.Ashley was restless being pregnant she couldn’t get comforable Tyler was a good boy he never complained at all going to Charleston.Got there went in two the hospital and took Tyler to the cast room he starts crying.He didn’t want the cast off.The man that takes the cast off talked to him and removed it.He had a big knot Big as a fifty cent piece I told them that that leg didn’t look right and I wanted the Dr to come see it, so he did he looks at me and says that he didn’t want to say anything that he didn’t know why they gave Tyler s appointment with him any way.That we would just have to make the trip again in two weeks with Dr Grouch.Dr MOONEY said that he didn’t do the surgery.For Ashley to go out and make a new app in two weeks and to be sure she gets it with Dr Grouch.Tyler has the cast off but he will not walk.Maybe he will start walking soon I hope so.He said his leg hurt coming home.He is crawling and will not walk yet.Please pray that he will be ok .aim so upset with Tyler’s DRS.I just pray that he will be able to get the treatment he needs.His little face is still pulling to one side I pray that before He has to have the jaw surgery that some great dr will want to help Tyler. Thank all of you that have stuck this out with us thanks for all the cards and prayers.Thank God that you all care so much about Tyler and his family.Thank you for reading,sigNing Tyler’s page we count each time as a prayer for Tyler and his family.I want you all to know that I hug and kiss Tyler every day and I tell him I love him.He can talk but its hard to understand a lot that he says.He’s still in therapy.He will start swimming therapy back now that his cast is off.I know that there are so many children out there that are worst off than Tyler.I pray all the time for them unless you have a child that has had cancer you may not understand.This was the 19th surgery for our strong little trooper,all theses surgeries was caused by things that happen because of the cancer so please just keep storming heaven for Tyler.He is truly a gift from god.THERE ARE NEW PITCURES IN PHOTOES
He’s amazing,

TYLER S DOING BETTER THAN HE HAS IN THE PASS THREE YEARS .THANK YOU [JESUS]
There are too many people in the world today who forget how lucky they are to have healthy, happy children. when your child is sick, you begin to realize that every day is a gift from God & you learn to live & be thankful for every day you have with your child. The good times become important & you learn to forget or overcome the days when health is poor. You learn to slow down & love whatever each day brings & is a better person for it.

Alveolar Rhabdo is HORRIBLE and AGGRESSIVE and just plain MEAN! It's considered the worst childhood cancer of all of them out there and Tyler and your family are incredibly strong people and FIGHTERS!!!!! Keep those boxing gloves on and never give up hope or faith! Tyler is incredible! How that young boy endures all those surgeries and fighting Stage 4 Alveolor Rhabdo is BEYOND amazing

Wednesday, February 1, 2006 8:22 AM CST

we want to thank hugs of hope member lisa j .For granting tylers wish for the circus tickets.He went sunday and loved every bit of it .AND THE REST OF US ENJOYED IT TO. THANKS SO VERY MUCH FOR PUTTING A SMILE ON TYTYS FACE

Hello
Ashley is going to have a little boy .Tyler is going to have a brother. We know for sure everything showed up in the ultrasound.Ashley and I are the only ones that wanted a boy so we are happy Ritchie,and Grandma Gail was hoping for a girl. We know that they will love it any way .I told Tyler who also wanted a sister. He looks at me and says aim so mad it was really funny. Ashley is not sure about the name but likes the name Hunter Jayden a lot. Maybe some of you would let us know if you like this name. Or send us some names that you don’t hear a lot. Maybe that will be his name we will let you all no later about that. Tyler told us yesterday that his leg was hurting maybe it’s nothing he will get the cast off in two weeks. Please pray that his leg will be well and not hurt him He is still in therapy. His face is drawing a little more to the side from not having a jaw bone but he is still able to eat. his speech is not the best but we can understand most he says and what I can’t understand Ashley can. Moms are like that they know what there babies want most the time. Ashley is a great mom; Gods giving her this baby for a reason .I don’t know why maybe, Ashley’s just such a good mom. Summer Tyler mim pincher has puppies four of them .They are doing great .and will be sold to help with traveling expenses to musc hospital.We all ready have all them sold.Thank you all for your prayers.please keep praying for Tyler and our family.He still has so much to go through. He’s the sweetest little boy and he loves every one. Everyone that sees him falls in love with him. He really enjoys the snail mail .so if you have a little spare time drop him a card. we have all the cards and the return address off all the packages it will all be given to Tyler when he’s older.He may want to Wright to some of you.It wouldn’t surprise me if he dose.He will be told about you all and how you stormed heaven for him and loved him.He will know that God heard all your prayers. this has been a long journey and we still have a long way to go. it helps so much to know that you all have been here for us and will be here .so just keep praying for our strong little trooper.
TYLER S DOING BETTER THAN HE HAS IN THE PASS THREE YEARS .THANK YOU [JESUS]
There are too many people in the world today who forget how lucky they are to have healthy, happy children. when your child is sick, you begin to realize that every day is a gift from God & you learn to live & be thankful for every day you have with your child. The good times become important & you learn to forget or overcome the days when health is poor. You learn to slow down & love whatever each day brings & is a better person for it.

Alveolar Rhabdo is HORRIBLE and AGGRESSIVE and just plain MEAN! It's considered the worst childhood cancer of all of them out there and Tyler and your family are incredibly strong people and FIGHTERS!!!!! Keep those boxing gloves on and never give up hope or faith! Tyler is incredible! How that young boy endures all those surgeries and fighting Stage 4 Alveolor Rhabdo is BEYOND amazing

NEW PITCURES .THE TOP ONE IS THE WAY HE LOOKS WHEN HE SMILES OR FROWNS.BUT IT SHOWS WHAT IS HAPPEN TO HIS LITTLE FACE
Tyler will always be beautiful in his Nannys eyes and heart.

MONDAY JAN 30TH 2006

HEY,Tyler is doing really good.His leg has hurt him a little but not like it did.we go back to get the cast off in a few weeks.please pray his leg has healed.He is happy that he will be getting a new brother or sister we will find out tomorrow.I will up date the web page soon as i know.please keep stroming heaven for tyler.he still has a long way to go.

JAN 24TH
Hello,I know you all have been waiting to hear about Tyler.Everything went well with the trip to Charleston.It was a long hard trip.we got to the hospital at seven thirty in the morning.they took Tyler back,then they sent him back out said his bone scans wouldn’t be till one.For us to go to the Rutledge tower get the x-rays for his leg.To see the Doctor about his leg.we walked over there,got the x-rays they called said they were ready to put him tO sleep it wasn’t even ten.we had to go back over to the hospital he was put to sleep for his x-rays.When he was done we walked back over to the towers and he got to see the Doctor about his leg.The leg has not healed all the way so he had to have a new one for three more weeks’He got an orange one this time.He picked out the color so we will be going back to Charleston in three weeks to get the cast of His leg was all black looking the scar was much longer.I think the black will go away when they took the cast off his leg was hurting.He had to have pain medication. Then we had to go back to the musc hospital for the bone scan so we walked back over.He had the bone scan and was such a brave little boy.Then we had to walk back over to the towers again thank God the nurses at the scan department had loaned a wheelchair for Tyler.We went then to the cancer Doctors.when we got there they had gone to a meeting and we had to wait a long time before they took him back.It was after four thirty before we got to leave to drive the four hrs home.We will let you all know more about the scans as soon as we hear Ashley did talk to Sue and she told her that she thinks that they are clear.I pray that they are Tyler goes to get the teeth pulled out on the 30th they were talking about dentures.I don’t no how they will do that he has no jaw bone to hold them in his mouth.Any way he is eating and doing just fine now Please keep signing his guest book it means a lot to us we know that you are storming heaven for Tyler.Please pray for our family as we are still own a long hard journey with Tyler.What a trooper this little boy is.Thank all of you that are still sending snail mail he still loves getting it.Every card is read to him and I think that the snail mail has helped him get through every thing.Also thanks to all his angels that send him small gifts angel Sharon and angel Kim,there’s something I need to tell you all Tyler is going to have a knew baby brother or sister Ashley was own the patch and it didn’t work She said that she didn’t mean to get pregnant.I was so mad at first.I was asking God why we all ready have so much own us.Then I was told that God was sending this baby for a reason.I started to thinking what a great mama she is and the way that she takes care of and loves Tyler.The way that she had been right with him through everything Then I just stared asking God to please let it be healthy that Ashley be ok.I all ready know that we all have enough love in our hearts for the baby.Her due date is July 7th.We appreciate all that you have done to help Tyler and our family.
There is a child that needsprayerhttp://www3.caringbridge.org/nv/richie/he has the same cancer that Tyler has.He also was in remission for a few years but his cancers back.Please keep storming heaven for Tyler God hears your prayers.I know
that there are people all over the world that love and pray for Tyler every day.please Pray that the cancer stays in remission

This stressful,emotionally,financially.

This was taken from Tyler’s guest book. Alveolar Rhabdo is HORRIBLE and AGGRESSIVE and just plain MEAN! It's considered the worst childhood cancer of all of them out there and Tyler and your family are incredibly strong people and FIGHTERS!!!!! Keep those boxing gloves on and never give up hope or faith! This was in one email. Tyler is incredible! How that young boy endures all those surgeries and fighting Stage 4 Alveolor Rhabdo is BEYOND amazing



. .

sunday January 15, 2006 12:53 AM CST

tyler fell knocked out one of the five or six teeth he has left,we took him to the deniest.He now has to go Have all them taken out the radiation had killed the roots on every tooth in his mouth. they are afraid of infection.Then he had to go see Dr Bloodworth here in Greenville he has a really bad cold.It is a little better now that he is taken medication.
Almost time to get the cast off it will come off 19th and scans on the 20th.Please pray for the cancer to stay in remission.that we have a safe trip,that tylers leg is ok.We love you all and all the snail mail and signing the guest book is so much apercated.
Tyler have a new post office please send all mail to Tyler at the address below.please keep stroming heaven for tyler
JAN-10-2006
Hello
We have heard from Dr Kline he said that he talked with Dr Day and that they feel that when the surgery is done that they will most likley hit the facial nerve.This will mess Tylers face up by causing it to be paralyzed.He wouldnt be able to smile.I couldn,t imitation tyty with out that big smile. and would have to have surgery to fix his eye cause he wouldnt be able to blink.This was a hard dession.Ashley, Richie,and I have decided to wait. Ashley said that she dosnt want to do it till it has to be done,Dr Kline said that even when they have to do the surgery later that they will most likely hit that nerve.But that waiting will give Tyler some time to grow and be normal for a while.He said that later tyler will have to have the surgery or he wont be able to eat or talk.His face will also pull over to one side.I think they have messed his face up and dont no how to fix it.They should have put a hinge in his jaw some way when they put the bone from his leg in that died.I talked to our preacher Rev Ronnie PoweLL and he prayed for tyler.I told him that we just need to put it in Gods hands.Maybe they will come Up with a way to fix Tylers jaw. Maybe something new will be found. Please keep him in your prayers.He still has so much to go through.We still have the cancer to deal with and praying that it will stay in remission We will still have all the trips to musc cancer Drs and trips for scans,But we feel that we shouldnt let them do anything to tylers jaw right now he is eating and talking for now.No one knows what will happen in the future.We will go to charleston on the 19th to get his cast off.Please pray that his leg is going to be ok.We will also have scans on the 20th.Thank you all for your prayers and being here for us.
There is a child that needsprayerhttp://www3.caringbridge.org/nv/richie/he has the same cancer that Tyler has.He also was in remission for a few years but his cancers back.Please keep storming heaven for Tyler God hears your prayers.I know
that there are people all over the world that love and pray for Tyler every day.Please Pray that the cancer stays in remission

This was taken from Tyler’s guest book. Alveolar Rhabdo is HORRIBLE and AGGRESSIVE and just plain MEAN! It's considered the worst childhood cancer of all of them out there and Tyler and your family are incredibly strong people and FIGHTERS!!!!! Keep those boxing gloves on and never give up hope or faith! This was in one email.
Tyler is incredible! How that young boy endures all those surgeries and fighting Stage 4 Alveolor Rhabdo is BEYOND amazing

Thursday, January 5, 2006 10:17 AM CST

HELLO EVERYONE
TYLER IS DOING REALLY GOOD,HE WAS ABLE TO GO TO SCHOOL.HE HAD A TEMPTURE ON NEW YEARS EVE AND NEW YEARS DAY.HES DOING FINE NOW.TYLERS REALLY ENJOYING THE CHRISTMASS GIFTS.LOVES LOOKING AT THE CARDS THAT WAS SENT.WE ARE WAITING TO HEAR FROM DR KLINE ABOUT TREATMENTS TO TAKE THE RADITION OUT OF HIS BODY TO GET HIM READY FOR JAW REPLACEMENT
WE ARE HOPEING THAT THEY CAN DO THEM HERE.SO WE WANT HAVE TO BE AWAY FROM HOME.TYLER WILL GO TO CHARLESTON ON THE 19TH TO HAVE HIS CAST TAKEN OFF LETS ALL PRAY THAT HIS LITTLE LEG IS ALL BETTER.HE HASN’T HAD MUCH PAIN IT’S A SHAME THAT HE WENT TWO YEARS IN SO MUCH PAIN BEFORE THEY FOUND WHAT WAS WRONG,IT FEELS SO GOOD TO SEE HIM SMILE,PLAY AND JUST BE A BOY.HE PLAYS WITH HIS DOG SUMMER A LOT HIS BEST BUDDY.TYLERS IS STILL IN THEROPY HIS SPEECH IS GETTING WORST.I CANT HARDLY UNDERSTAND HIM BUT ASHLEY CAN MAKE OUT MOST THE TIME WHAT HE WANTS.TYLER HAS A LOT TO GO THROUGH YET.HE STILL NEEDS YOUR PRAYERS.WE WILL HAVE TYLERS SCANS DONE AGAIN ON THE 20TH JAN.PRAY THAT HIS CANCER STAYS REMISSION.PRAY WHEN IT GETS CLOSER TO HIS JAW REPLACEMENT HE WILL NOT SUFFER.THE DOCTORS WILL BE GIDED AS THEY TAKE A RIB FOR HIS JAW BONE.THAT ALL THE RIGHT DESSIONS WILL BE MADE.WE HAD A LOT THIS YEAR TO THANK GOD FOR.FRIST THAT GOD IS A PART OF OUR LIFES,THAT HE HAS GIVEN US TIME WITH TYLER,GOD HAS CHOSEN TO LET HIM STAY ON EARH WITH US FOR A WHILE LONGER.HE HAS HEARD OUR PRAYERS.WE THANK GOD EACH DAY THAT YOU ALL HAVE BEEN SO KIND,THAT YOU ALL HAVE BEEN HEAR TO LISTEN PRAY AND CRY WITH US,YOU ALL BEEN A BIG PART A OF TYLERS RECOVERY THAT WE HAVE MADE SO MANY FRIENDS.THAT LOVE AND CARE ABOUT TYLER AND OUR FAMILY.FOR ALL THE PEOPLE AT NEWLIFE BAPTIST CHURCH THAT CARE SO MUCH AND HAVE BEEN PRAYING FOR TYLER.THAT SOME WAY GOD HAS TAKEN CARE OF OUR NEEDS THAT WE HAVE BEEN ABLE TO TAKE TYLER TO CHARLESTON TO THE MUSC MEDICAL DOCTORS,THERES NOT A DOCTOR IN GREENVILLE THAT WILL TREAT TYLER BECAUSE OF THE TYPE OF CANCER THE 19 SURGERIES HE HAS HAD.TREATMENTS HAS BEEN IN CHARLESTON,TYLER HAS A LOT OF COMPLICATIONS FROM THE CANCER.HE HAS NO JAW BONE AND HE HAS NO HINGE TO PUT A JAW BONE.HIS JAW NOW SWINGS AND THEY DON’T KNOW WHAT THEY SHOULD DO.THEY CANT USE ANY APPLANCES IT JUST WONT WORK IT HAS TO BE A BONE FROM TYLERS BODY.PLEASE PRAY THAT GOD WILL GIDE THESE DOCTORS AS WE TAKE THIS JOURNEY WITH TYLER.WE SENDS OUR PRAYERS OUT TO ALL THE OTHER SICK CHRILDREN.
There is a child that needs prayer http://www3.caringbridge.org/nv/richie/he has the same cancer that Tyler has. He also was in remission for a few years but his cancer is back.please keep storming heaven for Tyler god hears your prayers.I know that there are people all over the world that love and pray for Tyler every day.please Pray that the cancer stays in remission

This stressful,emotionally,financially.

This was taken from Tyler’s guest book. Alveolar Rhabdo is HORRIBLE and AGGRESSIVE and just plain MEAN! It's considered the worst childhood cancer of all of them out there and Tyler and your family are incredibly strong people and FIGHTERS!!!!! Keep those boxing gloves on and never give up hope or faith! This was in one email. Tyler is incredible! How that young boy endures all those surgeries and fighting Stage 4 Alveolor Rhabdo is BEYOND amazing

Dec-1-06

HAPPY NEW YEARS TO EVERYONE.TYLER HAS A TEM -101POINT 8.MAYBE ITS JUST NOTHING,BUT EVERYTHING WORRYS US .SO HE WILL GO TO THE DR TUESDAY MORNING.
KEEP HIM IN YOUR PRAYERS


TYLERS DOG SUMMER HAD HER PUPPIES ON THE 29TH SHE HAD FOUR.WE WILL SELL THE PUPPIES WHEN THEY ARE SIX WEEKS THEY ARE AKC REGRESTRED, MIM PIN PINS.
Wednesday, December 28, 2005 7:19 AM CST
Greetings to everyone
Christmas has been just wonderful. Tyler is doing great. It’s so good to see him being a little boy. He can walk and even run on his leg. what a Christmas miracle his leg hasn’t been hurting. He has been so happy with all the gifts and the snail mail. He was sitting in the floor with his cards in a circle looking at them he would say nanny this pretty one. And will just smile. Thanks to all his angels that sent him gifts. We hope that each of you had a good Christmas. Angel Kim I have lost your email. Most of all thank God. Believe me we know the reason for the season .there was a couple kids on our block that wasn’t getting much. Tyler went through his stuff. That he already had and gave to these kids .so they had a great Christmas too. Even let them have his sword that he loves so much. Tyler is truly a gift of god. As you all know I always ask for prayers for Tyler. I will always do this because I know that god is the one that keeps Tyler with us he has so much more to go through. The jaw surgery will be a big one .but god will be with us .your prayers are heard and you all have had a special part in saving Tyler’s life you have been there for us. From the begin of Tyler journey with cancer you have cried with us, listen to us, you have helped us in our time of need. thanks every one that has stuck with us through Tyler’s 19 surgeries .and will be with us through the next one Tyler has suffered and had a lot of pain in his short five years of life You have prayed, God has heard those prayers. Please know that this is one family that appreciates you all. We are looking soon to hear from dr Kline about the chamber .we are praying that they will do this in Greenville. this will take all the radiation out of his body .he will have thirty treatments .but it will also give the cancer a chance to come back .please pray that it doesn’t .it has to be done or the rib will not live in his jaw. When the surgery is done we will have to stay in Charleston a couple months. We were told that they will do the surgery as soon as the chambers treatments are over. We don’t know how many treatments they do a week. This is what dr Kline said before Christmas .Ashley will call today to see if the treatments can be done here in Greenville. we go back to get Tyler’s cast off own the 19th and he will have scans own the 20th we will have to stay in Charleston a few days .please keep Tyler and our family in your prayers. There’s a few new pictures own photos. Take a look at a little boy that loves you all.
If there are any one that dose not want tylers updates sent to there email please email me and let me know.
There is a child that needs prayer http://www3.caringbridge.org/nv/richie/he has the same cancer that Tyler has. He also was in remission for a few years but his cancer is back.please keep storming heaven for Tyler god hears your prayers.I know that there are people all over the world that love and pray for Tyler every day.please Pray that the cancer stays in remission.Have a wonderful and safe new year.
This stressful,emotionally,financially.

This was taken from Tyler’s guest book. Alveolar Rhabdo is HORRIBLE and AGGRESSIVE and just plain MEAN! It's considered the worst childhood cancer of all of them out there and Tyler and your family are incredibly strong people and FIGHTERS!!!!! Keep those boxing gloves on and never give up hope or faith! This was in one email. Tyler is incredible! How that young boy endures all those surgeries and fighting Stage 4 Alveolor Rhabdo is BEYOND amazing

Friday, December 23, 2005 6:18 AM CST

Hey everyone.our trip back to Charleston was long and tiresome.it took us four hrs there,four hrs back we were wore out Tyler did great he never complained one time .he went in to get the cast off and the saw scared him a little.he pick out the colors for his new cast he got a red and green one for Christmas.I put some pictures own photos that I took while the cast was off. for any one that wants to see them. he’s such a strong little boy He’s my hero. He loves all the Christmas cards and snail mail.you all have been just wonderful.Tyler will have a wonderful Christmas because you care.We are getting a break we don’t have to go back to Charleston till the 19th of Jan to get the cast off from this surgery and on the 20th he will have scans.He will soon be getting ready to go in that chamber to get him ready for his jaw replacement.It some kind of big round tube that will reverse the radiation in his body so that the rib will live in his jaw.He will have thirty treatments.Dr Kline said he will call right after Christmas to get Tyler started own this.It worries us because he said it could give the cancer a chance to come back.I pray that it doesn’t.Theirs some people that sent Tyler Christmas gifts and cards.thank you.There are a lot of people out there that love Tyler,his,family.and want to help. Any one that doesn’t want me to send updates on Tyler pleases just email,let me know.all the email address I have came from Tyler guest book.Tyler still has so much to go through.I will keep my faith in god.Knowing that he will get us through this.once again thank you all we love you.Tyler and our family will survive. This was taken from Tyler’s guest book. Alveolar Rhabdo is HORRIBLE and AGGRESSIVE and just plain MEAN! It's considered the worst childhood cancer of all of them out there and Tyler and your family are incredibly strong people and FIGHTERS!!!!! Keep those boxing gloves on and never give up hope or faith! This was in one email. Tyler is incredible! How that young boy endures all those surgeries and fighting Stage 4 Alveolor Rhabdo is BEYOND amazing!
There is a child that needs prayer http://www3.caringbridge.org/nv/richie/ he has the same cancer that Tyler has he also was in remission for a few years but his cancer is back .please keep storming heaven for Tyler god hears your prayers.I know that there are people all over the world that love and pray for Tyler every day.please Pray that the cancer stays in remission.Have a wonderful merry christmas.
This stressful,emotionally,financially.

Thursday, December 20 2005 7:27 AM CST

GOODNESS.WE JUST GOT HOME.A TOTAL OF 8 HRS THERE AND BACK. TYLER HAS A NEW CAST.THE DR SAID HE NEEDS TO WEAR FOR A MONTH LONGER.TYLER HAS A BONE THAT IS STILL STICKING UP.THE DR SAID THAT HE MAY HAVE GOT IT PULLED TO HI.HE WILL CHECK IT WHEN WE GO BACK. HE MAY HAVE TO FIX THAT.WE GO BACK ON THE 19TH OF JAN AND HE HAS SCANS OWN THE 2OTH AND WILL SEE THE CANCER DR THE SAME DAY.I WANT TO APOLIGIZE TO SOME OF YOU.I GOT A EMAIL SAYING I WAS ASKING FOR MONEY AND SNAIL MAIL,I DID ASK THAT YOU DROP TYLER A CARD.BUT I WASNT ASKING FOR MONEY.I DIDNT MEAN FOR IT TO SOUND LIKE I WAS.I WAS JUST TRYING TO THANK THE ONES THAT HAD SEND GIFTS AND SNAIL MAILI MEANT NO HARM.MAYBE I WORDED IT WRONG.I GUESS I SHOULD NOT HAVE PUT THE PAY PAL ACC.IF YOU FEEL BAD ABOUT HELPING TYLER OR ANY OTHER CHILD,THEN DONT.THERE ARE A LOT OF PEOPLE THAT LOVE TYLER OUT THERE.IF YOU WANT TO BE TAKEN OFF TYLER EMAIL PLEASE LET ME KNOW.IAM ASKING FOR PRAYER FOR TYLER BECAUSE I LOVE HIM SO MUCH .I KNOW PRAYER HELPS.KEEPING OUR FAITH IS ALL WE HAVE I THINK THAT ANY ONE THAT HAS HELPED TYLER HAS DONE IT FROM THE GOODNESS OF THERE HEARTS,WE LOVE YOU ALL.
THERES PITCURES OWN HIS WEB PHOTOES OF HIS LEG I TOOK THEM WHILE THE CAST WAS OFF

DEC17-05
I WANT TO THANK EACH OF YOU THAT HAVE SEND GIFTS AND SNAIL MAIL TO TYLER .HE WILL HAVE A GREAT CHRISTMAS BECAUSE YOU CARE MAY GOD SEND HIS BLESSINGS TO EACH OF YOU.ALL THE GIFTS
ARE BEING KELP FOR HIM TO OPEN CHRISTMASS DAY .I THINK HE MAY HAVE TRIED TO OVER DO THINGS WITH HIS LEG HE HAS BEEN HURTING MORE TODAY.HAS HAD TO HAVE THE PAIN MEDICATION .I THINK IF HE REST A WHILE HELL BE OK .WE GO BACK TO MUSC HOSPITAL TO SEE HIS DR THIS TUESDAY HE WILL GET A NEW CAST .
KEEP PRAYING WE LOVE YOU ALL



A FIVE YEAR OLD BOY NAMED ANTHONY SAVED HIS MONEY WENT AND PICK OUT A CHRISTMAS PRESANT FOR TYLER AND MAILED IT TO HIM.THANK YOU ANTHONY.THANK YOU FOR LOVING TYLER .
DEC-14-05
GOOD NEWS,Tyler is standing own his leg and tiptoeing around the house.
can you belive that.They said he wouldnt walk for four to six weeks.
what a strong boy we have.Mirracles
do happen.God has heard your prayers.
Please keep praying and signing Tylers web page it means a lot to us.knowing your there ,the jaw surgery will be coming soom in a few months,we love you all .tylers loving the snail mail thank you .

DEC 13TH
Hey tyler had a little more pain yesterday.Nothing like he was having befor surgery.He is doing really good at last sleeping most the night.He still want try to stand on his leg but iam sure he will soon.Thank each of you for the gifts and snailmail.All the gifts are put up for christmas day
If i miss thanking some one please know that we apercate you,please know that you made tylers christmas good.
We will return to charleston to have his leg checked and a new cast on the 20th.god bless we love you all .



DEC-11-05
Tyler had a great day he didnt have to take the pain medication but one time.
He want stay in that wheel chair he is crawling every where he even crawled up stairs.I cant hardly belive how strong this little boy is.I cant belive that it took the Drs two years to find out what was wrong with his leg.HE SUFFERED IN PAIN THAT LONG.I will just keep my faith and know that God is with us.God bless and thank each of you that love and care about Tyler and want to help him for christmas.You should see all the smiles when he gets snail mail.

DEC-10-05
I KNOW YOU ALL ARE WAITING TO SEE HOW TYLER WAS YESTERDAY AND LAST NIGHT .HE DIDNT HAVE A LOT OF PAIN.MEDICATION ONE TIME ALL DAY AND ONCE LAST NIGHT.HE WAS CRAWlING A LITTLE YESTERDAY BUT CANT STAND ON HIS FOOT AND LEG.I REALLY THINK THAT THE SURGERY HAS WORKED.THANK GOD MAYBE TYLER WILL HAVE NO MORE LEG PAIN.KEEP STROMING HEAVEN.BECAUSE PRAYER WORKS.

TYLER RECIVED SOME GIFTS FOR CHRISTMAS.I WANT TO THANK YOU.THANK YOU ALL FOR LOVEING TYLER AND CARING ABOUT OUR FAMILY.GOD WILL BLESS YOU,
I THINK TYLER MAY HAVE A GREAT CHRISTMAS,ITS ALL BECAUSE YOU ALL LOVE HIM AND CARE SO MUCH.I TURLY BELIVE THAT YOUR PRAYERS HAS KELP TYLER HERE,
HES DOING GREAT

Dec-8-05
tyler rested good he only had to take pain medication two time yesterday one time last night.please keep praying for him,pray his leg will heal and be good as new .we love you all


Tyler surgery is over and he is doing ok .he’s in a lot of pain right now but his medication will help with that.He is in a wheelchair and will be from 4 to 6 weeks.the dr said that his leg was all messed up said that he had to cut a small place pull the bone over and put a pin in to hold it in place.the pain should go away in a few days we hope.Tyler is so strong I told him going to Charleston that they were going to fix his leg he looks at me with tears in his eyes and says it will be ok nanny.Tyler must go back to Charleston to see the dr and get a new cast when the swelling goes down will be own the 20th I was wondering how in the world was we going to go right back up there.I prayed about this.then when I went own the computer I saw something from the pay pal acc.god had already answered my prayer.Mrs ward has put a gift of love into Tyler’s acc.Thank you so much Mrs ward anything that goes in Tyler acc is used for Tyler’s benefit.For travel food gas and medical expense.What a trooper he is.the surgery took 2 hrs and recovery was hr.we want to thank our preacher Ronnie Powell and Ricky a church member for coming to Charleston and staying with us till Tyler’s surgery was over we really appreciate all that is done to help Tyler he loves the snail mail.He got a letter from Santa.I read it to him and tried to tell him the meaning of Christmas.He just said that he is the man that stays at the hospital.And the man that brings him toys.We are going to have to teach him that it is Jesus birthday.I thank god every day for Tyler god has a plan for him look at what the drs have already learned from Tyler case and how many children have been helped.this was his 19th surgery, we are really worried about the jaw replacement coming up. Tyler will start the chamber treatments after Christmas he will have thirty treatments getting him ready for the surgery.they say they will use a rib.Tyler will be in remission two years dec 8th thank you Jesus please keep storming heaven for him he is fighting a long hard battle I think he’s going to win it with your prayers.My faith is strong. Christmas is three weeks away .some of you have ask to help Tyler size is six in every thing even underwear some one ask about sending Ashley something the only thing she has ask for is a portable co player with fm , am radio to take to the hospital with her.There around forty dollars,me I don’t want a thing only prayers for my boy and his mom.Some one ask Ashley age she twenty two now ,THE BEST MOM IN THE World I forgot to tell you that Ritchie Tyler’s daddy went with us to Charleston for Tyler surgery.Tyler was happy about this he loves his daddy very much. Ritchie was a big help picking tyty up he’s getting to be a big boy.Tyler was sitting in the wheelchair i ask if he could stand up he said it hurts me nanny but i will try if you want me to.what trooper.Please pray that God will guide us.Pray that the cancer stays in remission.
This is stressful,emotionally,financially.
Please keep storming heaven for our strong little trooper.

WE LOVE YOU ALL AND APRECICATE ALL THAT HAS BEEN DONE
MAY GOD BLESS YOU

FOR THOSE WHO HAVNT SEEN THEM THERE LINKS AT BOTTON OF PAGE TYLER WAS IN THE NEWS.

NEW PITCURES IN PHOTOES

DEC- 4 2005 7:57 AM CST

Thanks tylers angel mom Johanna
for all the hard work you did own tytys page.and Brenda for takeing her time to make the background on his page looks great.

If any one needs to get in touch with us tammy and jessica will be here leave a message and they will get it to us or call my cell number is at the top of page


Tyler is having the leg surgery on the 6th of December.this will be a one day thing.Tyler will get the bones pulled over and a couple pins put in his leg.please pray he will be ok.He will have a cast and be in a wheelchair for up to six weeks.Tyler loves snail mail it makes him smile.thanksgiving was great.we had sooo much to be thankful for.DECEMBER THE 8TH WILL BE TWO YEARS.Since diagnosed with stage 4 Alveolar Rhabdomyosarcoma a rare form of cancer.Now we just got to get through christmas.SOME PEOPLE HAVE ASK FOR TYLERS SIZE,FOR CHRISTMAS HE WEARS A 6 BOYS IN EVERY THING

Hello.We just got back from seeing Doctor Kline.this is so upsetting.Am going to try to tell you what all was said.He told us that he wants to go a head and get started with Tyler’s surgery.The first thing is that he wants to put Tyler in that chamber. This will reverse all the radiation. Doing this could give the CANCER chance to come back.Wants to give thirty treatments right after Christmas.Then right after that do the jaw replacement this is not a musc Dr this doctor has nothing to do with musc except he operates there and at Roper he was highly recommended.Then he said that he would use the rib. That there was a good chance that he might cut the nerve in Tyler’s faced. Ashley ask how bad that would be he said real bad it would mess him up and couldn’t be repaired this surgery may make him start slobbering all the time.He then told us that he will go back in about six months and put that screw thing in there.To stretch the bone.this doesn’t work this time he will go get the other bone from Tyler’s leg.We were not ready to hear all this.We were so upset that we went to the cancer clinic to talk to the dr there.we found Doctor Kervecker.she told us that Tyler needs the surgery that he was going to have major things happen with his jaw if he doesn’t have the surgery,that it will get to where it will affect his eating,talking and it will start hurting as he gets older.we were wondering if we should wait till Tyler was older she said know that if it was her child she would do it.she said that we were doing it for Tyler’s own good.when children get older and have to make these depression they get really depressed and dad things can often happen.Right now it is all being planed.We are going to talk to God long and hard about this.Doctor said that they do theses thing at musc and then send him to me to fix them.He really was a nice doctor but had to tell us what could happen.We are having the leg surgery on the 6th.this will be a one day thing.Tyler will get the bones pulled over and a couple pins put in his leg.please pray he will be ok.He will have a cast and be in a wheelchair for up to six weeks.we have tried shiner’s about his leg but received a letter saying it was to difficult case they would not except him.we have called st judes they can take care of the cancer part only but not all this other things that the cancer has done.
Duke said something about other doctor’s cases and law suites.so it is all left in gods hands.we don’t know any other thing to do.god will guide us.please keep storming heaven for Tyler and our family.There may be other places others Dr.we do not have the resources to get there and take care of ourselves and Tyler.We haven’t had any big benefits for Tyler. Other than the yard sales at our church and the golf thing that flash done for him a year ago.so just pray and pray for our Tyler and we will just keep our trust in god.we are stressed out and don’t know what we should do.I think that this is one that his mom and dad need to decide own.this is sad.Please pray that God will guide us as we continue this journey.Pray that the cancer stays in remission.
This is stressful,emotionally,financially.
Please keep storming heaven for our strong little trooper.

WE LOVE YOU ALL AND APERCATE ALL THAT HAS BEEN DONE TO HELP TYLER AND OUR FAMILY the leg surgery will be the 19th surgery for tyler and the jaw replacement will be number 20.makes you wonder if Ashley and Richie should just say no more.Gods will be done.

New pictures in photos

Wednesday, November 16, 2005 7:27 AM CST

Tylers surgery on his leg will be December 6th we will leave Greenville on the 5th.He will be at hospital only one day if everything goes ok. we will need to stay five or six days.so they can be sure he is ok before returning home.


Hello we made our trip to musc hospital and they have found out what is wrong with Tyler's leg.The bone that was taken out of his leg has left no support everything has shifted the wrong way.Tyler's leg has been hurting for two years.He cries in pain,falls They told us that they had not taken x-rays with him standing.finally they did.Even I could see what was wrong. there setting up surgery to pull all the bones back straight and put two pins in his leg this will help him.We hope not to have so much pain.musc hospital is suppose to call us this week he may be having this surgery before Christmas if they can get the operating room,I hope it will be after Christmas.He will be in a cast for six weeks.Please storm heaven for our strong little trooper.The jaw replacement is coming up in early summer.we are going back to Charleston own the 21st to see Dr Cline about the jaw surgery I went to the social worker at musc hospital she called the cancer society got a couple hundred dollars to help with gas and food.we want to thank her.This nice person from Ireland sent us fifty dollars to help with gas but when the letter got here the return address was all messed up so we cant send her a thank you card.I know that God will bless each of you that have helped Tyler.His journey has been long.and still going ,the devil keeps knocking us down,I will just keep my faith in God.I know that in the end we are going to win this battle.Cancer is a terrible thing for any one.It affects your hole family you have to just put your life own hold.I would do it all over again.I would take all the things that Tyler has wrong.If I could I would gladly live with one lung,a cripple foot.all the other things that he must go through therapy,speech Trips two three,times a month to Charleston to see Drs.All the needles and pain that he has.God has something wonderful planed for tyler.Thank you
all for the snail mail Tyler still loves it.He smiles when he gets mail
Thank each of you that has helped us the last two years and is still with us praying and helping us,thank you angel kim and angel sharon for making sure Tyler has something in the mail each week.Tyler started school today he will go to a special school.
They said that he was more like a two to three year old.that the cancer really put him behind in everything.I know God will bless him and he will be ok.You all know Ashley cant work and things are bad for her and us George Ashley's dad gets disabilty had a stroke years ago.we pay our bills,not much left to help Tyler and Ashley.Iam not asking you for money i just want you to do whats in your heart.just a card will put smiles own tylers face,a prayer will surley help.singing tylers guest book makes us feel good.we know you are out there for us.I just want to once again say thank you to all of you that have help with gas.food birthdays Christmas the last two years.
I pray that God sends his blessing to you all.I had some one ask Tyler's size he is in a six in every thing.
I also want to tell you that Ashley and Tyler are back home.They wasn’t able to keep the little house,please say a prayer and sign Tyler's web page I heard that a lot of aol users cant get own his page,we love you all.As soon as they call with the date of Tyler's leg surgery I will post the date.God bless each of you.
Please pray that God will guide us as we continue this journey.pray that the cancer stays in remission.This is stressful,emotionally,financially.
please keep storming heaven for our strong little trooper

New pitcures in photos

tylers pay pay acc, turpin10648@Bellsouth.net.

Tuesday, November 1, 2005 6:07 PM CST

HELLO
Well This has started off to be a bad week.We had to move Ashley and Tyler back home.She just wasn't able to pay the rent and all the bills that come along with being out own your own she wanted so bad to try but just couldn't do it.Tyler is happy he's back with his nanny.He is still hurting in his leg and still crying with it has taking his medication.Tyler got some more awards from some very special people.He got a award from CALIFORNIA ARMY NATIONAL GUARD.It was a flag in a glass case They said it was flown over battery headquarters in his honor.Said that he had the same courage that is exhibited by a military soldier He also got a pin of bravery and courage.this means a lot to Tyler and his family it was signed by Murray e Bradshaw.Then he got a award from GOVERNOR ARNOLD SCHWARZENEGGER on be haft OF all the people of CALIFORNIA.This was all made possible by the kids cancer connection. thank you all for loving Tyler and caring about our family.He still loves the snail mail and waits on the mail man.His angel kim and angel sharon and all his friends are making sure he gets something each day.thank you all for helping out with Tyler birthday you all were wonderful.please know that we appreciate each and every one of you.Tyler will start school on the 11th .He will not go to Greenville county schools but will be placed in a special school where he gets his therapy.he will go to school five days a week.He will still have therapy four times a week.Tyler needs your prayers he still has a long way to go. we will go back to musc hospital to see Dr Day on the seventh.He also has appointments own the 8th.The 9th he will see a nerve damage Dr about his leg pain Tyler needs your prayers he has a lot to go through ,Tyler is so sweet he is so lucky to have people like you that love and care about him.please keep signing his web page it means a lot to our family.I thank god that we have all of you out there storming heaven for Tyler.I don't think that Tyler would be here today if it wasn't for your prayers.we love you all.is so hard.Please pray that God will guide us as we continue this journey.pray that the cancer stays in remission.This is stressful, emotionally ,financially.
we have opened a pay pal acc for Tyler. turpin10648@Bellsouth.net.please keep storming heaven for our dear sweet little Tyler

Thursday, October 27, 2005 5:58 AM CDT

We have recived a call from Droctor Days office and we must make a trip back to musc hospital to see him own the seventh of nov.This will be about Tylers surgery.please keep praying for tyler and our family.


Wednesday, October 26, 2005 1:00 PM CDT
Hello we made our trip to Charleston and Monday was just awesome.We was to meet with flash [Debbie] at four in front of our motel we went out to wait in the car so we could put car seat in her van when she arrived.Guess what.This great big extra big limo came pulling up in front of motel,Ashley's eyes got great big ,she said that cant be for us.The driver got out.walked around to the passenger side holding a sign that read Tyler Tucker.I wish that you all could have seen the smiles own everyone's face.We got in the limo and Tyler was amazed with all the awesome lights inside the limo.Then we were taken to toys r us and what a happy little boy Tyler was they played with him,He was all over the store they gave him free gifts and then he pick out three hundred dollars worth of toys.a very nice man in Charleston MR Howard Partson paid the bill for Tyler.Then we were taken to chucky cheese Tyler was having a ball.He played games,ate pizza and enjoyed there shows.Tyler was just trilled.Then there was still a trip to the ice cream polar,Thank you Flash.And your wonderful friend for making Tyler's magical day.a wonderful day for our family.we love you.and you made what was coming the next day a lot better for Tyler to cope with because Tyler was facing a lot of doctors and needles .
Tyler received some awards from Charleston.was honored by the kids cancer connection with some awards for his determination and bravery to fight the battle against childhood cancer.Joseph Raily mayor of Charleston has proclaimed oct 25th as Tyler Tucker day in the city of Charleston.Charleston congratulates Tyler for his courage.He also got award from Leon E Stavrinakis from Charleston county council chairman.for his determination and bravery to fight the battle. WE WANT TO THANK THESE WONDERFUL PEOPLE .This was wonderful thank you all so much.
the next day all started out bad.We got up and went to the waffle house for a nice breakfast.when we got ready to leave I fell down the steps.aim ok.Then George backs into a car.There wasn't much damage and the law wasn't called.We got to the hem/onc doctors s at musc hospital and Tyler had a really hard time.They couldn't get his blood.He was screaming so hard.Finally he stopped I was thinking they were done well he starts screaming again I was sitting with tears in my eyes thinking my poor baby.He stops again and all of a sudden he is really pitching a fit screaming and I was thinking old my god WHY .When they finished Tyler had finger prints up and down his arms.They helt him so tight.We complained but they said they had to hold him like that because he was so strong and was fighting them.we seen the doctor and I complained about a lot of thing and told them what I though.I even ask if they could send us to st judes.but was told that st judes could treat the cancer things but would not be able to deal with all the other things that Tyler needs such as the leg.They are going to send him to a doctor to see if the nerve is what might be making his leg hurt so much.He was given tylenol with codeine for pain.Then to the endocrine doctors.Tyler's weight and growth at this time is good.They said at some point he would stop growing because of all the radiation he had to have so we could expect that.
this is so hard.please keep storming heaven for Tyler he needs you all and so do we we love you.all.
I hope that you can read all this.If you cant please be nice and don't say anything I do the bestI can
Please pray that God will guide us as we continue this journey.pray that the cancer stays in remission.This is stressful, emotionally ,financially .WE ARE NOT ASKING ANY ONE FOR ANYTHING EXCEPT PRAYERS. WE DID OPEN A PAY PAL ACC Tyler’s pay pal acc-turpin10648@bellsouth.net. SO THAT WE COULD GET TO WHAT LITTLE MONEY HE HAS WHEN WE TRAVEL .
GOD BLESS YOU ALL AND THANK YOY FOR LOVING TYTY









Read Journal History

Wednesday, October 26, 2005 1:00 PM CDT

Hello we made our trip to Charleston and Monday was just awesome.We was to meet with flash [Debbie] at four in front of our motel we went out to wait in the car so we could put car seat in her van when she arrived.Guess what.This great big extra big limo came pulling up in front of motel,Ashley's eyes got great big ,she said that cant be for us.The driver got out.walked around to the passenger side holding a sign that read Tyler Tucker.I wish that you all could have seen the smiles own everyone's face.We got in the limo and Tyler was amazed with all the awesome lights inside the limo.Then we were taken to toys r us and what a happy little boy Tyler was they played with him,He was all over the store they gave him free gifts and then he pick out three hundred dollars worth of toys.a very nice man in Charleston paid the bill for Tyler.Then we were taken to chucky cheese Tyler was having a ball.He played games,ate pizza and enjoyed there shows.Tyler was just trilled.Then there was still a trip to the ice cream polar,Thank you Flash.AND your wonderful friend for making Tyler's magical day.a wonderful day for our family.we love you.and you made what was coming the next day a lot better for Tyler to cope with because Tyler was facing a lot of doctors and needles .
Tyler received some awards from Charleston.was honored by the kids cancer connection with some awards for his determination and bravery to fight the battle against childhood cancer.Joseph Raily mayor of Charleston has proclaimed oct 25th as Tyler Tucker day in the city of Charleston.Charleston congratulates Tyler for his courage.He also got award from Leon E Stavrinakis from Charleston county council chairman.for his determination and bravery to fight the battle. WE WANT TO THANK THESE WONDERFUL PEOPLE .This was wonderful thank you all so much.
the next day all started out bad.We got up and went to the waffle house for a nice breakfast.when we got ready to leave I fell down the steps.aim ok.Then George backs into a car.There wasn't much damage and the law wasn't called.We got to the hem/onc doctors s at musc hospital and Tyler had a really hard time.They couldn't get his blood.He was screaming so hard.Finally he stopped I was thinking they were done well he starts screaming again I was sitting with tears in my eyes thinking my poor baby.He stops again and all of a sudden he is really pitching a fit screaming and I was thinking old my god WHY .When they finished Tyler had finger prints up and down his arms.They helt him so tight.We complained but they said they had to hold him like that because he was so strong and was fighting them.we seen the doctor and I complained about a lot of thing and told them what I though.I even ask if they could send us to st judes.but was told that st judes could treat the cancer things but would not be able to deal with all the other things that Tyler needs such as the leg.They are going to send him to a doctor to see if the nerve is what might be making his leg hurt so much.He was given tylenol with codeine for pain.Then to the endocrine doctors.Tyler's weight and growth at this time is good.They said at some point he would stop growing because of all the radiation he had to have so we could expect that.
this is so hard.please keep storming heaven for Tyler he needs you all and so do we we love you.all.
I hope that you can read all this.If you cant please be nice and don't say anything I do the bestI can
Please pray that God will guide us as we continue this journey.pray that the cancer stays in remission.This is stressful, emotionally ,financially .WE ARE NOT ASKING ANY ONE FOR ANYTHING EXCEPT PRAYERS. WE DID OPEN A PAY PAL ACC Tyler’s pay pal acc-turpin10648@bellsouth.net. SO THAT WE COULD GET TO WHAT LITTLE MONEY HE HAS WHEN WE TRAVEL .
GOD BLESS YOU ALL AND THANK YOY FOR LOVING TYTY

Wednesday, October 26, 2005 7:48 AM CDT

Tyler's magical day
Hello we made our trip to Charleston and Monday was just awesome.We was to meet with flash [Debbie] at four in front of our motel we went out to wait in the car so we could put car seat in her van when she arrived.Guess what.This great big extra big limo came pulling up in front of motel,Ashley's eyes got great big ,she said that cant be for us.The driver got out.walked around to the passenger side holding a sign that read Tyler Tucker.I wish that you all could have seen the smiles own everyone's face.We got in the limo and Tyler was amazed with all the awesome lights inside the limo.Then we were taken to toys r us and what a happy little boy Tyler was they played with him,He was all over the store they gave him free gifts and then he pick out three hundred dollars worth of toys.a very nice man in Charleston paid the bill for Tyler.Then we were taken to chucky cheese Tyler was having a ball.He played games,ate pizza and enjoyed there shows.Tyler was just trilled.Then there was still a trip to the ice cream polar,Thank you Flash.AND your wonderful friend for making Tyler's magical day.a wonderful day for our family.we love you.and you made what was coming the next day a lot better for Tyler to cope with because Tyler was facing a lot of doctors and needles .
Tyler received some awards from Charleston.was honored by the kids cancer connection with some awards for his determination and bravery to fight the battle against childhood cancer.Joseph Raily mayor of Charleston has proclaimed oct 25th as Tyler Tucker day in the city of Charleston.Charleston congratulates Tyler for his courage.He also got award from Leon E Stavrinakis from Charleston county council chairman.for his determination and bravery to fight the battle. WE WANT TO THANK THESE WONDERFUL PEOPLE .This was wonderful thank you all so much.
the next day all started out bad.We got up and went to the waffle house for a nice breakfast.when we got ready to leave I fell down the steps .but aim ok.Then George backs into a car.There wasn't much damage and the law wasn't called .We got to the hem/onc doctors s at musc hospital and Tyler had a really hard time.They couldn't get his blood.He was screaming so hard.Finally he stopped I was thinking they were done well he starts screaming again I was sitting with tears in my eyes thinking my poor baby.He stops again and all of a sudden he is really pitching a fit screaming and I was thinking old my god WHY .When they finished Tyler had finger prints up and down his arms.They helt him so tight.We complained but they said they had to hold him like that because he was so strong and was fighting them.we seen the doctor and I complained about a lot of thing and told them what I though.I even ask if they could send us to st judes.but was told that st judes could treat the cancer things but would not be able to deal with all the other things that Tyler needs such as the leg .they are going to send him to a doctor to see if the nerve is what might be making his leg hurt so much.He was given tynol with codeine for pain.Then to the endocrine doctors.Tyler's weight and growth at this time is good. They said at some point he would stop growing because of all the radiation he had to have so we could expect that.
this is so hard.please keep storming heaven for Tyler he needs you all and so do we we love you. all.
I hope that you can read all this and if you cant please be nice and don't say any thing I do the best I can
Please pray that God will guide us as we continue this journey.pray that the cancer stays in remission.This is stressful, emotionally ,financially .WE ARE NOT ASKING ANY ONE FOR ANYTHING EXCEPT PRAYERS. WE DID OPEN A PAY PAL ACC Tyler’s pay pal acc-turpin10648@bellsouth.net. SO THAT WE COULD GET TO WHAT LITTLE MONEY HE HAS WHEN WE TRAVEL .
GOD BLESS YOU ALL AND THANK YOY FOR LOVING TYTY

Friday, October 21, 2005 7:19 AM CDT

Hello
Some things going own next week I want to tell you all about.First as you no we leave to go to Charleston on the twenty fourth for a magical day for Tyler with flash.Tyler will get to to eat where ever he wants and he will get two go shopping at toys r us.That's going to be a lot of fun,then on the twenty fifth he will go to the hem/onc doctors,then over to the Endocrine doctors for some blood work.He's not going to like that one.Tyler is going to receive some awards from Charleston.He is being honored by the kids cancer connection with award on oct-25th.For his determination and bravery to fight the battle against childhood cancer.Joseph Raily mayor of Charleston has proclaimed oct 25th as Tyler Tucker day in the city of Charleston.Charleston congratulates Tyler for his courage.He will also get award from Leon E Stavrinakis from Charleston county council chairman.
for his determination and bravery to fight the battle against childhood cancer this will be a courageous kid award and they have declared Tyler a honorary citizen of Charleston county.[way to go Tyler] we want to say thank you to all these wonderful people of Charleston

Tyler is missing the entire right mandible dentition the only thing there is a small plate no bone,he has a free floating right side with no hinge or bone,there is shortening of the right side of the mandible Tyler will need a complete reconstruction and a repeat fibular reconstruction.Tyler has a complete over bite .It is getting hard for him to chew his food ,he he has had a long course of treatments for Rhabdosarcoma Tyler is expericing speech language and socialization delays.He has had multiple surgeries.these surgeries include resection of the right mandible .also bone draft to the right mandible.also a partial lobotomy,tracheotomy..he has had at this time eighteen surgeries and still more to come .please keep storming heaven for this strong child
Please pray that God will guide us as we continue this journey.pray that the cancer stays in remission.This is stressful, emotionally ,financially
http://www.geocities.com/wecare4_kids/tyler.html there are some pictures on this page of Tyler you might want to see
Tyler’s pay pal acc-turpin10648@bellsouth.net

Wednesday, October 12, 2005 6:04 AM CDT

Hi wanted to say thank all of you for making Tyler's birthday so special thanks for all the gifts,gift cards.birthday cards.The money that he got his tranformer with.Thank you angel sharon for the jogging suite it just fit.Thank you Savannah and Derick for the jogging suite and for his spiderman game.Thanks Angel Kim for Tyler's coat he's really going to need that soon.It just fit him.He really looks good in yellow.Thanks Pat for the wonderful throw you made Tyler.He loves it.we know you stiched every stich with love for tyler.It will be always own the back of his little chair.You will never no how much we really appreciate you.Most of all thank you all for loveing tyler and praying for him We love you all.Keep praying for our little trooper.Tyler is having a lot of pain in his leg it is keeping him awake and he cries alot with it.Thanks also to rainbow kids Tylers name was in a drawing and he won a gift card.He has recived it.If i left any one out please no that we apercate it all.He will make a trip to Charleston on the 24th.Will see Endocrine Doctors and hem/onc Doctors on the25th.Still havnt heard from the Doctors about his surgery.They was going to call us within two weeks.Keep praying

10-8-05
Tylers party was great he got lots of gifts and we had lots of pizza.There are some pictures in photos.Thank you all for making this a happy birthday for tyler he loved all the gifts and cards he sat with me,we read all the cards.We had birthday cake and he blew out his candel Then we opened gifts.Then he went to walmart,got him a great big tranformer.He was smiling ear to ear.Please keep stroming heaven for our brave strong little five year old ONCE AGAIN WE APERCATE ALL YOU DO TO HELP ASHLEY AND TYLER

Tyler is all happy about his birthday. He is such a little sweetheart.I wanted to tell you all that Debbi Stevenson used to be head of happy days is going to give Tyler a magical day in Charleston on the 24th He will go where ever he wants to eat, will get to go to toys r us.Thank you Debbie [flash].Tyler and his family love you.Then we will stay the night.He has app-with Endocrine DR and app-with the cancer DR on the 25th
PLEASE KEEP PRAYING FOR THIS STRONG LITTLE TROOPER.Also please go see tylers birthday page just click at the birthday box.This was made by Chris [tuesdays_child@earthlink.net].we thank them so much.Thank you all for the birthday gifts and money that was sent to tyler God knows we need it and apercate it God will bless you all for loveing tyty.KEEP STROMING HEAVEN FOR TY

10-11-05

Hi wanted to say thank all of you for making Tyler's birthday so special thanks for all the gifts,gift cards.birthday cards. the money that he got his tranformer with.Thanks Angel Kim for Tyler's coat he's really going to need that soon.It just fit him.he really looks good in yellow.You all will never no how much we really appreciate you all.We love you all.Keep praying for our little trooper.Tyler is having a lot of pain in his leg it is keeping him awake and he cries alot with it.

10-8-05
Tylers party was great he got lots of gifts and we had lots of pizza.There are some pictures in photos.Thank you all for making this a happy birthday for tyler he loved all the gifts and cards he sat with me,we read all the cards.We had birthday cake and he blew out his candel Then we opened gifts.Then he went to walmart,got him a great big tranformer.He was smiling ear to ear.Please keep stroming heaven for our brave strong little five year old ONCE AGAIN WE APERCATE ALL YOU DO TO HELP ASHLEY AND TYLER

Tyler is all happy about his birthday. He is such a little sweetheart.I wanted to tell you all that Debbi Stevenson used to be head of happy days is going to give Tyler a magical day in Charleston on the 24th He will go where ever he wants to eat, will get to go to toys r us.Thank you Debbie [flash].Tyler and his family love you.Then we will stay the night.He has app-with Endocrine DR and app-with the cancer DR on the 25th
PLEASE KEEP PRAYING FOR THIS STRONG LITTLE TROOPER.Also please go see tylers birthday page just click at the birthday box.This was made by Chris [tuesdays_child@earthlink.net].we thank them so much.Thank you all for the birthday gifts and money that was sent to tyler God knows we need it and apercate it God will bless you all for loveing tyty.KEEP STROMING HEAVEN FOR TYLER

10-4-05
tylers leg is still hurting him but he is doing ok .he is looking foward to his fifth birthday.this sunday. tyler will be going back to musc cancer droctors on the 25th of this month. we havnt heard from the surgeon that will be doing his surgery
please keep stroming heaven for tyler.
we love you all

9-30-05
TYLER HAS BEEN HURTING IN HIS LEG AND WAS NOT ABLE TO GO TO THEROPY.PLEASE PRAY THAT THIS PAIN WILL GO AWAY.HE IS HAVING SOME PAIN IN HIS JAW.each day tyler Faces so many Medcial Problams Each time he gos for a scan We all pray that the cancer has not came back.
HIS BIRTHDAY IS NEXT SUNDAY ON OCT-9TH

9-29-05-
THANK YOU SO MUCH KAROL HARRISON FROM PRAYER WORRIORS.FOR YOUR GIFT IN TYLERS PAY PAL ACC IT WILL HELP OUT SO MUCH.I NO GOD WILL REWARD YOU FOR YOUR KINDNESS.
9-28-05-
TYLER WOKE LAST NIGHT WITH PAIN IN HIS LEG.HE HAD TO TAKE HIS MEDICATION TWO TIMES DURING THE NIGHT.PLEASE KEEP PRAYING FOR TYLER.
THE PITCURES IN PHOTOS WAS TAKEN 9-27-05 LOOK AT THOSE BIG PERTTY EYES

9-27-05-
TYLERS BIRTHDAY-OCT-9TH
DARLENES BIRTHDAY-0CT-6TH
IF YOU WOULD LIKE TO MAIL A CARD OR SNAIL MAIL.TYLER TUCKER OR DARLENE COX Care of Martha Snead 227 EARLE DR GREENVILLE SC.29611 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610
Tyler is doing good at this time.

Wednesday, September 21, 2005 1:22 PM
Well we are back from MUSC.It was ok as far as the trip.We have got some dissapointing news. We saw about 8 differnt teams of doctors.They all were looking in his mouth.They thought at first that the bone might not be dead because his skin flap looked very good, but when they looked at the xrays they took last time we were there they saw it was comepletely gone.They said tyler is the first child they have ever seen were the skin flap has survived but the bone has died.They said that they cant use rib.It cant be used were you have had radiation. It wont survive in that kind of enviroment.They said we have 2 choices we have to use another fibula or hip.There are down sides to both. The last fibula flap has caused alot of pain in tyler's leg and didnt survive in his jaw. They said it died because he had to have radiation in his jaw and that they didnt predict if they used it again that it would die or cause pain in his leg. The hip takes along drawn out process.He would have to go into a hyperbaric chamber everyday for 3 or for 4 hours for weeks.They think that another fibula flap will be the best.I havent decided what i want to do.I cant take him anywere else cause medicade wont pay for it and most other doctors dont wont to mess with other doctors work because of malpractice suits.The doctors had a big meeting the same day after we left and they siad they would call in about two weeks. We also talked with the doctor from happy days he agrees with musc doctors and thinks that the surgery should be done there.with the doctors that already know Tyler and his case. He also said a rib could not work in a place that had had radiation.I don’t understand why they told us they were going to use a rib.this is going to be a really long surgery and Tyler will most likely have to have a trach again. Please pray that this will turn out good please pray that Tyler’s other leg will be ok.This is a hard thing for Ashley and I to deal with but we will just stay strong and keep our faith.We no with out God in our life’s Tyler wouldn’t be here today.This hurts me to no all the pain that Tyler must go through yet.I cant even imagine how his mom and daddy feels.We don’t even no what the family will do finically but God will show us a way.Thank you all for your continued love and support thank you for all the snail mail.thank you all for signing Tyler’s web page.it means so much to no you all are there for us praying please stay with us and keep storming heaven for this sweet lillie boy. thank you all for the little gifts Tyler enjoys so much.His birthday is coming in a few weeks oct 9th. Pat Tyler is caring your five dollars around in his pocket.He said that was toy money.Please pray that God will guide us as we continue this journey.pray that the cancer stays in remission.This is stressful, emotionally ,financially
http://www.geocities.com/wecare4_kids/tyler.html there are some pictures on this page of Tyler you might want to see
Tyler’s pay pal acc-turpin10648@bellsouth.net

send mail to Tyler the address
MARTHA SNEAD BOX 14662 Greenville sc 29610 TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610
OR PHONE DARLENE OR ASHLEY 864-605-0236

FROM A FRIENDS PAGE.THIS IS SO TRUE
http://www.caringbridge.org/canada/beckybunny
There are too many people in the world today who forget how lucky they are to have healthy, happy children. When the assumption of a healthy life is taken from you, you begin to realize that every day is a gift from God & you learn to live & be thankful for every day you have with your child. The good times become important & you learn to forget or overcome the days when health is poor.You learn to slow down & love whatever each day brings & are a better person for it.

Saturday, September 10, 2005 7:40 AM CDT

Sweet little Eric Dakota went to heaven this morning at 605 am.please pray for his famiLY.This is sad.

Tyler’s birthday is Oct 9th, some people have ask what they can get him he needs- pants size 6-shirts 6-Underwear-6-coat size 6.everything he has is too little.we going to try to give hime a birthday party at home.
maybe pizza,he loves pizza

Tyler goes to musc hospital on 9-20-05
to see the Craniofacial and cleft patate center to see Dr Day and all the teams of Drs that will be doing his surgery.
Yet another week has passed.Tyler still crying with his leg he hasn’t said much this week about his jaw.he is eating really good and every thing is going great with him and his mom right now.There still loving there little house.He is taking his therapy six times week.He doesn’t want to go tired of it I think.He needs the therapy.I no that Tyler has a long way to go his surgery will be rough. This will be Tyler’s 19th surgery what a trooper he has been.I can look around and fine so many more in worse shape.If you all will please visit http://www1.caringbridge.org/mn/ericdakota/ he needs your prayers his 10th birthday is a few days away and his family doesn’t no if he will be with them.so please say an extra prayer for Eric.He got sick just about the time Tyler did and I have followed his progress.It’s been mostly down hill. So please help me storm heaven for him and his family.Thank you all for your continued love and support of Tyler and his family.You all have been wonderful.we could have gotten this far with out you all.The snail mail is wonderful.All his angels have been great there’s never a week goes by that he doesn’t get mail.Thank you so much this helps these children.Some one ask if Tyler had really been this sick well he’s had cancer he’s been cut from ear to ear he’s had bone taken from his leg placed in his jaw he’s had a trach.six different feeding tubes he’s had his jaws wired shut he’s had his right lung removed, his leg is messed up.The bone has died in his jaw and he’s facing more surgery.He’s not hearing good.He’s had 52 weeks chemo and six weeks radiation
That he had to be put to sleep for all the radiation.He has to travel to visit dr three and a haft hrs away from home seven hrs there and back.He has scans that they have to put him to sleep each time also.So yes I would say he’s been that sick.Tyler and Ashley are the love of my life.My days revolve around them.Trying to make sure they have what they need times are and have been hard for us but as I have said so many times before I just keep my faith in god he will see us through.To no Tyler is to love him he has be biggest eyes and smile you ever seen.Thank god that I have a wonderful church family that really cares This is stressful,emotionally and financially
http://www.geocities.com/wecare4_kids/tyler.html there are some pictures on this page of Tyler you might want to see
tylers pay pal acc-turpin10648@bellsouth.net

send mail to Tyler the address
MARTHA SNEAD BOX 14662 Greenville sc 29610

or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610
OR PHONE DARLENE OR ASHLEY 864-605-0236

Monday, September 5, 2005 3:04 PM CDT

Hello
Tyler has cried every night this week with his little leg hurting.His pain medication was upped last time we went to clinic. His jaw also hurts some to.He had a temp yesterday but its gone today.He will have to deal with the pain till he has surgery.Ashley has found her a little house to rent so Tyler will have his own room.that he needs so bad.itis only a block from nanny.it is really cheap.His disability check will go up a little because him and his mom are out own there own.Ashley and Tyler are so happy.it is really cute little house.Tyler doesn’t want to come out of his bed room.He plays in there all day.That keeps him off his leg some the back yard has a fence around it for summer.Ashley’s dad told her he will do his best to help her keep the house so Tyler will have a home of his own.tyler is such a sweet little boy to no him is to love him you just cant help it hes got some great big eyes and they are so pertty.thank you all for the kindness you have given us all the love and support of Tyler,our family.please keep praying for Tyler he has so many compations from his cancer and has so much yet to go through.all the snail mailed is so much appreciated he loves it.and there are a couple of people that want to start web pages for children with cancer they said that Tyler had inspired them to do this so maybe from this other children will be helped.there is a link at the bottom called we care please go vist tyler there. I want to thank helen for putting the new song on tylers web page.Also thank you all for signing the guest book as you no we count each time signed as another prayer for Tyler.aol users can get own tylers page.caringbridge has helped to fix it so you can get own there. thank all of you for being there when I need to talk and I need a sholder to cry own there was some one that said some bad things.it hurt my feeling so much I do the best I can just that they were talking bad about me.I have given up my whole life to be with my grandson and his sweet mommy.So please be nice and if you cant say something nice just don’t say anything .God knows I try to be a good person no one nos the pain you feel when you have a child with cancer or that has had cancer you cry you ,pray you sit up nights and hold your baby you thank god for every min that hes not sick or hurting You wonder if he will grow up or if god will call him home.I also thank god that I have a wonderful church family that really cares This is stressful,emotionally and financially
http://www.geocities.com/wecare4_kids/tyler.htm

tylers pay pal acc-turpin10648@bellsouth.net

send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610
OR PHONE DARLENE OR ASHLEY 864-605-0236

Tuesday, August 30, 2005 3:26 PM CDT

say a prayer for all the people that were in new orleans.mississippi,when hurricane katrina hit they are needing you to strom heaven for them some have lost there families and there homes they have very little food water,no money. pray for all the people that are there trying to help.take a mim and pray for these people please


Hello Tyler’s hearing test was today he is not death.he has a blockage and they don’t know what it is now we have got to take him back to the dr to see what the blockage might be.Please pray that it is just ear wax or something. Any way it’s good to no that he is not death in his right ear.Maybe we will find out that it is nothing to worry about.Tyler had a good week he hasn’t been in a lot of pain this week till this morning and he said that his leg and jaw was hurting Ashley ask if he needs pain med and he said it don’t help.But she gave it to him any way.he also said that one of his teeth was hurting.He only has a few all have been removed from the right side most the front ones are gone too.Please keep praying for Tyler he’s still got so much to go through.He’s in therapy now six times a week instead of 4.He didn’t get to start school the dr said that he needs the therapy more we will just have to pray that he will catch up.He has been playing and running with summer more now that he has his brace on his leg.But he still falls down a lot.Thank you all for your kindness thank you for loving tyty.he’s still waiting on the mail each day.Tyler will be having his major surgery in about six months to replace his jaw they have decided to use a rib the surgery will take about six to eight hrs.He will be in the hospital for a while he’s a strong little boy and I no god want for sake us now.We just keep our faith and no that God is with us all the way.It has been a long two years,Tyler has had eighteen surgeries allready. it has helped so much to have all of you to talk to.Thank you for sticking with us all this time.Tyler has learned to talk pretty good we can understand most of what he says. because the bone has died in his jaw he is talking from the side like a person that has had a small stroke,I tell Tyler every day I love him and give him hugs and kisses he such a strong little trooper.tyler has lived 2 years and 7 months so far with his Alveolar Rhabdomyosarcoma diagnosis,which is a LOT longer than MOST kids who have this kind of cancer diagnosis I want people to understand what it is like to be a parent of a cancer-kid.I was wondering if you all would pass his web page to friends and ask that they sign his web page we count each time it’s signed as another prayer for Tyler.I truly believe that all of you storming heaven for Tyler.That god has heard each one of you and that is why Tyler is still here, God has great plans for this very special little boy Please keep storming heaven for Tyler I feel that he’s going to be o.K. God has been with us all the way and he want leave us now.Thank you all for your continued love prayers and support. Of Tyler. his family, thank you all for all the snail mail.I have every card and letter saved for Tyler.I want to thank Lynn ,for putting some money into Tyler’s pay pal acc.it sure helps out with gas and food,we have some money from the yard sale but when your making all the trips to musc hospital and Tyler’s therapy six time a week now,yard sale money want last long.Mom cant work This is stressful, emotionally and financially.send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610
OR PHONE DARLENE OR ASHLEY 864-605-0236





..

Friday, August 26, 2005 7:05 AM CDT

Hello
our trip to musc hospital went well tyler is such a little sweetheart.We stayed at Howard Johnson.Ronald house was full again.Tyler wanted pizza for supper so that’s what we had.not to my likening.Then we were at the hospital by eight.this is what he told us, he said that the medal has to come out of Tyler’s jaw now that his bone had died.that he will have to have the jaw construction sooner than planed.He said that he needs to make sure Tyler is strong enough for the surgery.he want to move the surgery up to around early summer in march he doesn’t want to wait till October, October was the original plans,he said that Tyler would have to stay on prescription pain meds till then for the pain.that his little body should be stronger by early summer.but that we shouldn’t wait any longer.we will have to make another trip to see him and all the other teams that will be in the operation room there will be a lot of teams ,five or six people in each team .the operation will take from six to eight hrs,he will have a team from ear nose and throat ,plastic surgeon team ,maxillofacial protagonist team ,pediatric dentistry team oral surgeon team and the oncologist,cancer team .he said Tyler’s body is weak from all the chemo and radiation.He said that he worries about the cancer. He also thinks that Tyler needs to have the surgery there.He said the surgery would be nothing like what he has already been through.That all the dr knows Tyler and would no what to do in an emergency. But that he will be in intensive care a few days and then in hospital for a while.they are going to take a rib from Tyler and replace the jaw bone with it.he was also worried about Tyler leg.the fact that he falls and it hurts him. He is wearing his brace but still falls .we will take Tyler to the ear dr on the 30th. they think that he is almost death in the ear the side cancer was in something else to deal with.but he’s worth it all.i love this little boy with all heart,i would let them have my rib if i new i could help him. Please keep storming heaven for Tyler I feel that he’s going to be ok.I no god has been with us all the way and he want leave us now.Thank you all for your continued love prayers and support.Of Tyler.his family,thank you all for all the snail mail.i have every card and letter saved for Tyler.I want to thank Lynn ,for putting some money into Tyler’s pay pal acc.it sure helps out with gas and food,we have some money from the yard sale but when your making all these trips to musc hospital and Tyler’s therapy six time a week now,it takes it the yard sale money want last long .any one that would like to help Tyler and his family please no that we appreciate it all the money goes for Tyler’s care.mom cant work This is stressful,emotionally and financially.If any one wants to donate money to help send donations to Tyler’s papal acc at turpin10648@bellsouth.net
or to send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610
OR PHONE DARLENE OR ASHLEY 864-605-0236

Tuesday, August 16, 2005 7:07 AM CDT

Tyler got his brace yesterday is doing really well with it looks good to.will take pictures of him in the brace soon and put on here for you all to see.WE will beleaving to go musc,the twenty fourth and will be at musc hospital to see Dr Day on the twenty filth.this dr will look at his jaw and decide what we are going to do about the metalt sticking him now that he has no bone there.Please keep storming heaving for Tyler.He’s still having pain in his jaw and leg.Thanks to all of you that helped with Tyler’s yard sale.church support and the community has been just wonderful,snail mail is still coming once in a while.Thank you all for that Tyler still loves all the mail he’s still takeing one of the books with him every where he goes that patsy sent to him thank you patsy for loving Tyler.Thanks for all his special angels out there that send small packages to him every week.I no it’s been two years and people have gotten tired of reading about Tyler, his family.They have almost stopped signing his web page.Please remember him in prayer as you pray daily he’s still got so much to have to go through.We still have so much traveling to do with and for him.He a special little boy.God has a special place in his kingdom for Tyler one day until then he’s got a special place here on earth in my heart.I need to tell you all what happen to me Sunday,well I decided I would go white water rafting with my daughter Tammy boy was that a mistake we were in a number 4 rapids,well we hit a rock I fell out right in the water that was spinning.I couldn’t get out it kelp dragging me under I couldn’t breath I went under for the third time one of the men in the ducks came and saved me he pulled me to a big rock on my stomach.then rolled me over.pumped my chest to get some water out I had almost drowned.I sit up but didn’t no any one for a little while.aim fine now.scared George,he said that I was under a long time,he thought I was gone.I will never try anything like that again.guess aim just to old for that.pictures on the photo page.Funny now but it sure wasn’t then.all I no is god was with me.George hurt his arm also trying to get the raft off the rock it hit.But we are safe at home now and we are fine.except i cant stop crying tore my nerves up.i no that it was one of gods miracles that iam here.guess i should have stayed home and went to church.please go see the photes and sign tylers gust book.I will up date again as soon as we see dr day.I tell Tyler ever day that I love him i hold him and get big hugs and kisses each day,thank you for all that you have done in the pass to help Tyler,and our family.

If any one wants to donate money to help or to send mail to Tyler the address.
MARTHA SNEAD BOX 14662 Greenville sc 29610.
or to our church.all donations must have tylers name on them.
TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610.
Thank you all god will bless you

PHONE DARLENE OR ASHLEY 864-605-0237

send donations to Tyler’s papal acc at turpin10648@bellsouth.net

Sunday, August 7, 2005 12:54 AM CDT

Well we had Tyler’s benefit sale raised two thousand one hundred fifty dollars,that was just awesome,We had a great time and the members of our church was just wonderful, god has surely been with us, the journey has been long and we no that we have long way to go, but we trust in god and no that there will be A way for Tyler as he needs it maybe not all at one time but god has seen that there was away. Thanks to all of you for your love and support, prayers, please keep storming heaven for tyty ,now we have to take him to get fitted for his leg brace Monday the eight .then we have two go get him tested because they said that they think he might be death in one ear and may have to wear a hearing aid .so that is on the twenty fourth then we have to leave after that appointment and go to musc hospital to see dr day about his jaw ,there a piece of metal sticking through his jaw.We don’t know what they will won’t to do. But it is hurting him and his leg is hurting him bad to. So they had to up his pain meds.we are suppose to go back to Florida in Jan to see dr Marx.hes the dr that wants to take a rib or hip bone to replace Tyler’s jaw.that sound yucky.Poor baby, but god will be with him,this will be a while so I will just wait and worry then about this one. Tyler went to the benefit sale but he wanted to stay in the church with a friend,he did come out and jumped in the castle.That these wonderful people from upstate parties. Donate there time and the castle and all the money from it.he was in by him self and we were holding our breath praying that he wouldn’t fall on that jaw or own his leg and break it but we wanted him to be a little boy for awhile .thank god all went well with that he’s still in one piece.as I was walking to the bath room I hear him tell a little girl that’s my nanny,I love my nanny.,he has gotten where he can talk really well.tears welled up in my eyes.as I thanked god for him for all the love the smiles, this is truly a child of god he is a walking, talking, miracle,I tell Tyler ever day that I love him And I hold him and get big hugs and kisses each day, think you all that have kelp the snail mail coming that has really helped It makes him smile and he loves tearing the mail open.thank you for all that you have done in the pass to help Tyler, and our family.If any one wants to donate money to help or to send mail to Tyler the address
MARTHA SNEAD BOX 14662 Greenville sc 29610
TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610

PHONE DARLENE OR ASHLEY 864-605-0237

send donations to Tyler’s papal acc at turpin10648@bellsouth.net

Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

Any checks or money sent to happy days must say that it is for Tyler tucker you all have become such a big part of our life’s. I won't you to know that we appreciate every thing..

Wednesday, August 3, 2005 11:08 AM CDT

Hello wanted to let you all hear from us Tyler was
tested yesterday and they said that he was Deaf in one ear they said he will probably have to wear a hearing aid.
He is on his way to musc today to see a dr about A brace for his leg and to see if he will have surgery on it. please keep storming heaven for tyty, we go back to musc in Charleston on the 25th of this month about his jaw they may haveto go ahead with that surgery. He has metal plate sticking through his jaw And that is what's hurting him so much.
keep praying please keep signing Tyler’s web page.Sending the snail mail he still loves all the mail.So just keep storming heaven for our little boy, Ashley is doing ok She handles all this really well She’s such a wonderful mom. This is stressful,emotionally and financially.

Tyler's benefit sale at our church august 6th,if any one around Greenville has donations of yard sale items they can be taken to the church on 253 In front of west side park. All this money will be put in a acc for his surgery

If any one wants to donate money to help or to send mail to Tyler the address

MARTHA SNEAD BOX 14662 Greenville sc 29610

TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610

PHONE DARLENE OR ASHLEY 864-605-0237

send donations to Tyler’s papal acc at turpin10648@bellsouth.net

Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

Any checks or money sent to happy days must say that it is for Tyler tucker you all have become such a big part of our life’s. I won't you to know that we appreciate every thing..

Tuesday, July 26, 2005 3:52 PM CDT

Hello
Sorry I haven’t updated sooner. There’s a lot going on.. Good news and bad news. Tyler’s scans are fine they were clear
He dose have a small cyst in his petuitary gland, but we were told not to worry about it unless it started changing. We were told that Tyler has a little metal plate that is sticking his jaw because the bone died that was placed there .that side of his face is a little flat .we have to go see Dr day on august the 25th to see what they want to do, it has started causing Tyler pain in his jaw again. Something will have to be done .also the leg that they took the bone from for the jaw .is not growing right it is turning in and causing Tyler to fall and hurt him self .we have to go see the Dr about that at musc hospital on august 4th they said that he will have to have a brace again that’s for sure. and that he might have to have surgery .his leg hurts him just about all the time .they gave him some stronger pain meds little fellow fell at the motel hurt his head and then fell again and hurt his foot as we were leaving .got to clinic and he fell in the floor there too .the Drs at the clinic said that Tyler needs to go to therapy six times a week now instead of three that he needs to go to therapy instead of school.he will most likely have to start school next year.please keep storming heaven for Tyler.that cancer sure messed him up.thing are going well with the benefit sale that we are going to have at church. We are getting a lot of yard sale items donated.Ashley is coping with everything all right. We no that god is with us.
Thank you all for the snail mail and the email u are all just supper friends Tyler got a book in the mail I gave it to him from angel sharon and he looked at me and ask nanny dose she love me.I told him she sure dose honey and she’s praying for you .he just smiled.Tyler benefit sale at our church august 6th ,if any one around Greenville has donations of yard sale items they can be taken to the church own 253,in front of west side park.All this money will be put in a acc for his surgery, if any one would wont to put money own Tyler’s food card all they have to do is call 1-843-792-2123 ask for musc food service dept and tell them that you wont to put money on Tyler tuckers food card.This can only be used for food at musc hospital and is a wonderful way to help Tyler and his family.please email me and let me no if you do this our card is empty and I want no there’s anything own it. with Ashley’s dad not able to work he’s disable and Ashley,cant work. because of Tyler.it really helps out. Please no that we love and appreciate you all. I no that we have had to have a lot of help but this is so expensive The motel at hospital prices and gas and food was 170.oo for just one night and day. The Ronald mc Donald house was full I think they didn’t offer it.I will let you all no next week what the scans show.keep praying please keep signing Tyler’s web page.Sending the snail mail he still loves all the mail.So just keep storming heaven for our little boy, Ashley is doing ok .She handles all this really well. She’s such a wonderful mom.This is stressful,emotionally and financially.If any one wants to donate money to help or to send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610 OR PHONE DARLENE OR ASHLEY 864-605-0237 send donations to Tyler’s papal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

any checks or money sent to happy days must say that it is for Tyler tucker
you all have become such a big part of our life’s. I wont you to know that we appreciate every thing..

Wednesday, July 20, 2005 7:46 AM CDT

Hello,
We stayed at the Howard Johnson’s over night. our trip went well to musc hospita.Tyler was in scans from eight till three,he did very well.they put him to sleep and he slept through most of it it. He didn’t cry this time; he’s such a brave little boy. We went down to eat while he was sleeping, to fine out that all our money own our food card was used up.He woke and wasn’t too happy about the needle in his hand.all the people at the hospital was so glad to see him and how much he had grown in such a little time they hugged us all.they have become a part of our family I had told him not to cry and we would go to Wal-Mart and buy him a toy. Must have worked.The cancer,Dr had called Ashley and said that we will need to make another trip to see them next Monday on the twenty fifth.So we headed home.Tyler was wanting to see summer [his dog] he sure loves that dog .she’s about nine pounds now.We will not no about the scans till Monday the 25th.But I feel sure they will be clear.I just feel it in my heart.god has been so good to us .and I no he will be with us as Tyler’s journey continues, and he has to have all the other surgeries that he needs ,please keep storming heaven for tyty .We came back to find out that Tyler’s little buddy who has the same cancer as him has been told that there is nothing else that they can do for him .his name is Eric. we have been keeping up with him for a long time.I cried as I read his web page please storm heaven for Eric http://www.caringbridge.org/mn/ericdakota/.this is so hard own the child and the families .this child is playing and feeling good I cant imagine what they must be going through. We are getting things ready for Tyler benefit sale at our church august 6th ,if any one around Greenville has donations of yard sale items they can be taken to the church own 253 ,in front of west side park.All this money will be put in a acc for his surgery, if any one would wont to put money own Tyler’s food card all they have to do is call 1-843-792-2123 ask for musc food service dept and tell them that you wont to put money on Tyler tuckers food card.This can only be used for food at musc hospital and is a wonderful way to help Tyler and his family.please email me and let me no if you do this our card is empty and I want no there’s anything own it. with Ashley’s dad not able to work he’s disable and Ashley,cant work. because of Tyler.it really helps out. Please no that we love and appreciate you all. I no that we have had to have a lot of help but this is so expensive The motel at hospital prices and gas and food was 170.oo for just one night and day. The Ronald mc Donald house was full I think they didn’t offer it.I will let you all no next week what the scans show.keep praying please keep signing Tyler’s web page.Sending the snail mail he still loves all the mail. Oh yes the dress did not sell own eBay.I have a ring aim going to try to sell.It’s a old rose gold 14k. Black onyx. maybe we will have better luck with it.So just keep storming heaven for our little boy, Ashley is doing ok .She handles all this really well. She’s such a wonderful mom.This is stressful,emotionally and financially.If any one wants to donate money to help or to send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610 OR PHONE DARLENE OR ASHLEY 864-605-0237 send donations to Tyler’s papal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

any checks or money sent to happy days must say that it is for Tyler tucker
you all have become such a big part of our life’s. I wont you to know that we appreciate every thing.

Friday, July 8, 2005 5:00 AM CDT

Hello everyone,Tyler is doing ok he has had a good week.Had pain in his leg,jaw but it hasn’t kelp him from running and playing with summer,He shot fire works with Jessica aunt Tammy,uncle david ,he was so excited he was saying more more more he was trilled.it was so good to see him laugh and smile again.Tyler still has knots in his neck.we will be leaving Greenville on the 14th and going to musc hospital for scans on the 15th please keep us in your prayers that we will have a good trip and that the scans comes back clear.I think they will be clear,we have God on our side.We won’t let the devil win.God is a wonderful God he has made a way for us and I no he will be there all the way.We are trying to get our benefit sale together at our church, new life Baptist; on 253 in Greenville august 6th if any one around here has donations of yard sale items you can call our church.Please pray that we will have a good turn out.All the money is being saved for Tyler’s jaw replacement,he still taking therapy four times a week. He is talking really good.We still don’t know about school he has to do more testing to see where he will go to school.All we no is that they said he would have to go to special school.thank you all for the snail mail its great and each one that has sent mail to Tyler has helped him to heal.these kids love getting mail it puts smiles on there faces lets them have a little bit of happiness.I thank god for each of you, you all have been just wonderful each card and every address has been kelp for Tyler.He will no as he gets older how many wonderful people out there love and care about him may god bless each of you.Hess also enjoying the email cards. Please pray for all the sick children,for all the parents that have lost children, please pray for my friend chances mom patty who now has cancer,I cant imagine,the hurt and hard ship of a mother and her child both having cancer.thanks to happy days of Charleston for the wonderful camp for cancer children,Tyler wasn’t able to go but I no that the ones that did had a lot of fun ,Well thank you all for all the prayers,kindness.we love you all.Thank you all for being here for us.I no you must get tired of hearing about this, Tyler would not be here with out your love and prayers.So just keep storming heaven for our little boy,Ashley is doing ok.She handles all this really well.She’s such a wonderful mom.This is stressful both emotionally and financially.If any one wants to donate money tohelp or to send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610 OR PHONE DARLENE OR ASHLEY 864-605-0237 send donations to Tyler’s paypal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131
any checks or money sent to happy days must say that it is for Tyler tucker
you all have become such a big part of our life’s. I wont you to know that we appreciate every thing .

Wednesday, June 29, 2005 7:14 AM CDT

Hello
Tyler was taken to the pediatrician here in Greenville. Ashley wasn’t too happy when she came back home. They just looked at his ear and put him own more antibiotic. He still has the knots, they haven’t gotten any bigger. Ashley said that the ear infection wasn’t what making his jaw hurt so much. He has already been on antibiotics that were supposed to be the strongest one they could give him. But his ear is draining and smells really bad. Please pray for our strong little boy. He is crying now with his jaw hurting again and his leg. I felt his jaw and you can feel something feels like a sharp piece of metal or something. Ashley said it was already their but I never felt it before maybe its because his face is growing and is getting flatter on that side, I don’t know but it worries me. I will be glade when its time to scan him again on the 15th of July. I just pray he’s ok, I feel he will be I just keep my faith in god .I no he’s got plans for tyty.I love this little boy with all my heart. I make sure that I tell him every day that I love him and mommy. He had a few good weeks and played a lot with summer. He sure loves that dog. Getting summer was a good thing. He played in the pool a lot to with his cousin’s tiffany and Jessica. Those girls really takes care of him .they show how much they love him. Tyler will get back in therapy four times a week next week. He is talking a lot better. You can almost understand everything he’s saying. He is also walking a lot better too. We are going to have a benefit sale for Tyler at our church, new life Baptist. on august 6th .we wont to take him back to Florida to see dr Marx in Jan or Feb. about his jaw replacement. They plan to use a rib this time, but they will only be setting everything up for the surgery when we go he will not have it till around his six birthdays. He will be five this October 9th.thank you all for the snail mail. Thanks to all Tyler’s angels that send angel mail, you all are wonderful. I don’t know how many of you no chance, please pray for his family. His mom now has cancer http://www2.caringbridge.org/ga/chance/
We haven’t got to do anything yet this summer Tyler has some free tickets to carolwinds.Ashley and grandma gail plan to take him. I fell and hurt my leg so I don’t think I could walk that much. I went to the er it wasn’t broken but it sure hurt.
Well thank you all for all the prayers and the kindness .we love you all. Thank you all for being here for us .I no you must get tired of hearing about this, Tyler would not be here with out your love and prayers.
So just keep storming heaven for our little boy, and keep sending snail mail. I know that this helps these children to heal, and it surely keeps a smile on there faces. Ashley is doing ok. She handles all this really well. She’s such a wonderful mom. This is stressful both emotionally and financially. If any one wants to donate money to
help or to send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610 OR PHONE DARLENE OR ASHLEY 864-605-0237 send donations to Tyler’s paypal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131
any checks or money sent to happy days must say that it is for Tyler tucker
you all have become such a big part of our life’s. I wont you to know that we appreciate every thing .

Tuesday, June 14, 2005 7:50 AM CDT

Hello We are back home, but not knowing much more than we did when we went to musc Cancer clinic.They looked at Tyler’s knots, and told us that they could not tell us 100 percent that it was not the cancer back.The dr said that she didn’t think it was.She thinks that they arecoming from and ear infection that he has.That she didn’t won’t to expose Tyler to any more radiation than they had to it can cause cancer if he is exposed to it to much. She wants to put him on an antibiotic, and see if the the knots go away if they start to get bigger. If they do get bigger we have to take him back on the 27th. If they go away or stay the same size we go back for scans July 15th. Tylers doctor at the clinic said that his lymph nodes had been removed ,but that they can grow back .Tyler did had some high blood counts. I also told them that I thought that some one should be monitoring his jaw a little closer. This child has no jaw bone and dr O’Neal says to bring him to see him around his six birthday for surgery. Well seems that if he’s going to do the surgery he would want to see him more than that. I think we have decided to take him to Dr. Robert Marx in florida to have his jaw surgery. We stayed at the Ronald McDonald house. They had a small park right out side the door with sand, slides,and swings Tyler liked that. They also had games for him to play on play station ,and a really good kitchen with lots of food .Tyler didn’t like it cause he couldn’t take food or drink into the room ,but there has to be rules.We had to share a bathroom with three other families , but that was okay least we had a place to stay.It was only fifteen dollars a night .The staff there was really nice. We didn’t go visit any one in Charleston. Tyler was ill and didn’t feel good so we just brought him home.I will just keep my faith, and put this all in gods hands.Hes a wonderful god and I know that if we didn’t have him. Tyler would not be here today. So just keep storming heaven for our little boy, and keep sending snail mail. I know that this helps these children to heal, and it surely keeps a smile on there faces. Ashley is doing ok. She handles all this really well. She’s such a wonderful mom. This is stressfull both emotionally and financially.If any one wants to donate money to
help or to send mail to Tyler the address MARTHA SNEAD BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX 14879 BLUE RIDGE DR GREENVILLE SC 29610 OR PHONE DARLENE OR ASHLEY 864-605-0237 send donations to Tyler’s paypal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131
any checks or money sent to happy days must say that it is for tyler tucker
you all have become such a big part of our life’s.I wont you to know that we appreciate every thing .You have stuck with us since Jan 2003.What wonderful caring people you are may god bless each of you. It hurts to know that Tyler must still have all the surgeries, but we know that you all will be there with us in sprit ,and praying for him all the way. Tyler went today to be evaluated to see were he will be placed in school. He is behinde in almost everything. this is what he scored
Physical age :40 months
Selfhelp: 36 months
Sociial age:52 months
Academic age:42 months
Communication age: 28 months
He is supposed to be at 56 months on everything. We have to go back for more evaluations before they can tell us were he will be placed.


This is a look at some of tylers history.To know Tyler is to love him .He has new pictures on the photo page ,and please sign his web page. We read and count each one as a prayer for Tyler. Also if you could pass his web page to friends for a prayer.(to get a full history on Tyler read his past journal history)


Tyler was diagnosed with alveolar rhabdomyosarcoma of the mandible and lungs. He has had his right side of his jaw removed and reconstructed with his fibula. He has had part of his right lung removed. He has had many other surgeries too. His has had a years worth of chemo and almost six weeks of radiation. He is currently in remission but still has a 60 chance he will relapse. He is in physical, occupational, and speech therapy. He has scans and goes to clinic once every three months. He also has to go see a lot of other doctors in Charleston.

THURSDAY 08- 2005 7:45 AM CDT

Everyone,please prays for tyty he’s got two knotes right below his scar where they took cancer out.We will take Tyler to musc hospital for scans xrays or what ever they need to do. his limp notes were removed when he had his jaw replacement.god please don’t let this be cancer.let it just go away.Tyler has been so strong through all his eighteen surgeries.he now hates the needles and the hospitals.he cries when he has to go. Nothing to do but wait and pray.I have called our church and a prayer group has been started for tyty.he has had a wonderful week playing with summer and cousins in the pool.He’s been smiling all week.And hasn’t had a lot of pain. we will be leaving home Sunday to go to Charleston,we will stay at the Ronald McDonald house thank god they have one.we will let everyone no as soon as we can what they tell us the knots are.
if any one wants to donate money to
help or to send mail to Tyler the address MARTHA SNEAD,BOX 14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX14879 BLUE RIDGE DR GREENVILLE SC 29610 OR PHONE DARLENE OR ASHLEY 864-605-0237

Wednesday, May 11, 2005 8:11 AM CDT

Hello
Well Tyler still has the blisters on his hands and feet, he now has holes in his feet, the skin is peeling off. We have taken him to the doctors here but they are now saying that they don’t know what this is he will see a specialist Monday hope they will soon find out what this is it is really pain full, please pray that the blisters will go away. that the cancer stays in remission. He hasn’t been able to go to therapy, they think this might be catching and won’t let him take therapy. He needs therapy for his speech and his leg.. Tyler needs a lot of help learning to speak, so that you can understand him He was taken it four times a week .scans will be coming up around the end of June. They have changed scans to every six months now. Because could the radiation harm his body. He will still see the clinic doctors every other month .he will Also see the surgeons in Charleston; he will be going back to Florida in Jan or Feb. to see Doctor Marx. he will let us no all about his surgery that he is suppose to have around six years old .this will be a complete jaw replacement they will most likely use a rib. Tyler will have to have three to four more surgeries on his face. His leg is still hurting just about every day he is still taking pain medication for that. we are still keeping our faith and thanking god each day .we are praying for all the other children ,and for all the families that don’t have there children with them .we are going to have a benefit yard sale, hot dog sale at our church to make money for Tyler’s surgeries. All the money raised will go to help Ashley and Tyler it will be august 6 at new life Baptist church. On 253 .here in Greenville. If any one close around have any donations that we can sale we would really appreciate it .call our church at 864-295-4032 or Darlene at 864 605-0237 be sure to say that the donations are for Tyler tuckers benefit sale. We need any thing that can be sold .we also wont to say thank you once again for the snail mail Tyler loves getting mail.. send his mail to Martha Snead at po box14662 Greenville sc 29610 or TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX14879 BLUE RIDGE DR GREENVILLE SC 29610. Please keep signing tytys web page and keep storming heaven for him. We love you all and appreciate every thing that has been done to help Tyler. We couldn’t have gotten this far with out you and we thank god that we have your love, also the little gifts have been so special to Tyler his little face lights up if it’s a sticker or a little car or shirt . he just smiles and says its mine.
God bless you all

April 25 2005 1:14 PM CDT

Tyler went to musc clinic and for the first time pitched a fit. He did not want to go.I guess he’s just tried of all the needles.It was long ride there and back.It was three and a half hrs there and three and half back.He has been so strong through this.Everything went well at the clinic.He had a few counts that were a little high,they said it was nothing to worry about They had to stick him with a needle to get blood it took three to hold him down he has never screamed so hard.iwish he still had a port it was so much more easy on him.He now will go to get scans every six months now Something about the radiation harming his body.He gets the next ones in July.His leg is still hurting every night.He is taking medication for it. His brace is too small now.We will have to see about that.You can now tell that there is something wrong with his face.It is a little flat on one side,and is drawing to one side a little bit.I hope that the next surgery will take care of that.We went to happy days to visit while we was in Charleston this wonderful lady mrs ozzie at Ovieira@hartz.com .had sent him a box of toys for his puppy summer and a check for him of fifty dollars. We took the check to Wal-Mart and got him some summer shorts. He had plenty of winner stuff,but only a few summer outfits.We sure do thank all of you for you love prayers and continued support of Ashley and Tyler. As you all no Tyler’s trips, Dr appointments, and therapy four time a week is the reason his mommy cant get a job. Tyler’s papa George helps all that he can .Disabilty doesn’t go far.Tyler gets a check for a little over three hundred a month and his daddy gives him thirty a week now. Please just keep us all in your prayers I continue to keep my faith as we go through this journey with Tyler and Ashley.You can send mail to Our church new life Baptist,SEND CARDS AND DONATIONS TO TYLER TUCKER C/O NEW LIFE BAPTIST CHURCH PO BOX14879 BLUE RIDGE DR GREENVILLE SC 29610. Tyler loves the snail mail, and he still waits for the mail man to bring him mail.So thank you all for all the cards and gifts that you send him.We love you all.No that you all have a part in Tyler’s healing and that god will reward you in so many ways for helping Tyler and Ashley.please keep signing the guest book we love reading it.I would have never believed that this could happen in our family,But god has been with us.I know he will be there no matter what happens in the future. There are new photos on photo page. Tyty will go to school next year.We are not sure where yet.Ashley is so worried about kids making fun of him. He has so many scars and his speech is very good. Please pray that this doesn’t happen.He is talking a lot better but not plain.we were wondering if any one out there knowes how to put tylers journal history on a cd or floppy or even print it.Ashley would love to haveit.it can be found at the top of this page in small blue letters journal history
Any of these address will do for mail or donations
Tyler’s papal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

Hello God,
I called tonight
To talk a little while
I need a friend who'll listen
To my anxiety and trial.
You see, I can't quite make it
Through a day just on my own...
I need your love to guide me,
So I'll never feel alone.
I want to ask you please to keep
My family safe and sound.
Come and fill their lives with confidence
For whatever fate they're bound.
Give me faith, dear God, to face
Each hour throughout the day,
And not to worry over things
I can't change in any way.
I thank you God for being home
And listening to my call,
For giving me such good advice
When I stumble and fall.
Your number, God, is the only one
That answers every time.
I never get a busy signal,
Never had to pay a dime.
So thank you, God, for listening
To my troubles and my sorrow.
Good night, God, I love You too,
And I'll call again tomorrow!

Wednesday, March 23, 2005 8:00 AM CST

Hello
Tyler still has his blisters some as big as a dime .he is taken medication now for them if this doesn’t work he will be sent to a specialist. We go back to the cancer Drs on the twelfth of this month,please pray that every thing will be ok.pray thatTyler’s cancer stays in remission. He is still having leg and some jaw pain;I think he will always have it.he still hasn’t gotten to go to therapy. They wont let him come he may give the children his blisters.That would be bad.The Dr Now says that he has strep.Always something with Tyler.Tyler is such a sweet little boy I think god for every day,hr,mim that we have with him/he is eating really well,but not gaining any weight .he is playing, running with summer his dog,and is riding his little four-wheeler on pretty days. He has learned all his colors.Thanks to all the color books and crayons that have been sent to him. He loves that snail mail
Thank you all. His angel Sharon went to Disney and got him a Disney Mickey hat he loves it.Been wearing it around for three days.I won’t to thank each of you for all your prayers and for loving Tyler and every thing that has been done to help Tyler and our family. You all have been wonderful. We love you. Thing around here have been hard Ashley cant work with Tyler in therapy four times a week and all the trips to the Dr both here and Charleston.But with gods blessings and your help we have may it so far. Thank you God will bless you.I also won’t to thank you all for the phone calls.it means so much to no that Tyler has so many people that love him all over the world.To no that people care. Please keep storming heaven for Tyler and our family. I no that God hears all of it. and has plans for Tyler, please keep signing his guest book. Tyler is not out of the woods yet. But he has come a long way. his next surgery will be the 19th surgery .what a strong little trooper he is. Please hug your child and tell them you love them every day .no one noses what tomorrow may bring.I tell Tyler every day that his nanny loves him and that he’s my little sweetheart,some times he will look up at me with those eyes and say do you love me .I will tell him that I love him,mommy and daddy loves him, that God loves him and that there are people all over the world that loves him and are praying for him. When you all go to church Sunday say a special little prayer for Ashley,Tyler,
new photos
if any one wants to help Tyler family send donations
Tyler’s papal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

Thursday, March 3, 2005 5:48 AM CST

Hello
Tyler woke thursday morning couldn't stand up.He has blisters on his hands, feet.The doctors are going to wait until Thursday if they are not gone they will begin to look for the cause.They seem to think it could be contagious so he is not allowed to see anyone.Children of the promise are scheduled to visit with him Thursday. Please pray that these blisters heal quickly and that they aren't anything serious.If they aren’t gone in a week they will look to see what else this might be.He will have to miss therapy this week He still has the leg pain and has been telling Ashley his jaw hurts a few times. He is eating well and the j tube hole is healing really well.He is playing with his puppy summer,running in the yard.God has been so good to us. He hears our prayers. Please keep storming heaven for Tyler and all the other sick children and there families,please sign the web pages we count each time as a prayer for Tyler.We thank you all for the snail mail please keep itcoming I really believe it has helped Tyler heal. We love you all thank you for your kindness. all that you have done to help us. Thank you for loving tyty. We go to musc on the 12th of April. Also thanks happy days for all your love and support. What wonderful caring people you are.God will bless you many times. Thank you Mr.Patterson and every one that helped with the golf torment for Tyler in Charleston I don’t know how much they raised, but it will be kept in aaccount at happy days till we need it.Tyler will have three or four major surgeries as he grows. So we are going to try to be perpared. I also wont you all to no that your emails mean so much to me.to no that you all love Tyler so much people all over the world no of him . Praying for him.I turly belive that your prayers and stroming heave has kelp Tyler with us. he has now survied eighteen surgeries. I have said so many times before hes my heart. i would really cut off my arm or leg to save him i would take this cancer my self.I have prayed that God give it to me if it has to come back to please let Tyler stay in remission.iam just so scared for my little tyty. you are always wondering and praying.iam grandma but i couldnt love this child any more if he were mine.i just keep my faith and keep praying .ps tyler has the best mommy in the world.



send donations to Tyler’s papal acc
at turpin10648@bellsouth.net

OR

Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

This was sent to Tyler
Jesus
originals by flournoy

He didn't have to die for me,
He did it by His choice,
He died to set all men free,
I almost hear His voice.

"It is finished," then he died,
And how long was He dead?
Not for long, still they cried,
Since then much has been said.

I would have wept had I been there,
I know that you would,too,
Now with Him a life we'll share,
Eternal life. That's true.

He could have called the angels down
To take Him off the cross,
He could have appeared upon the ground
For me it would've been a loss.

Jesus didn't need to die,
Nor suffer such such a way,
It was His choice from up on high,
For our sins He'd pay.

Jesus! Jesus! Precious name,
It means so much to me,
Now I will never be the same,
For He has set me free.

Wednesday, March 2, 2005 10:10 PM CST

Hello
iam sorry i havnt updated sooner .we went to musc and everything went fine. tyler seen Dr oneal and he said that he could do his surgery as good as the dr in florida , thst musc was rated 3rd in the usa, he said it was just so far to have to take him ,he didnt say why he didnt no that tylers bone had died that was placed in his jaw,he said we could take him to dr marx if we wonted to .but i will leave
that up to ashley .all though i think he should go to florida.he has had a great week ,hes been eating ,going to theropy four times a week.hes doing good with it .he still haveing pain in his leg. he got the j tube out and it is healing really good.
i spent the day with tyler in the yard picking up sticks. he was such a joy to be with, as i watched him smile and run i just thanked god, that he was with me .i ask god to gide us as we keep fighting the cancer monster,i ask go to please keep my little tyler safe and strong and healthy,
and i also ask god to be with all the sick chrildren.
please keep praying for tyler we are not out of the woods yet. we go back to musc april 12th to the cancer clinic
some time in april we also have scans.tyler has a puppy her pictures are on the photos she a doverman pincher and her name is summer,tyler is taking really good care of her , we also thank all of you for the snail mail tyler still loves it and also thanks for all the help getting us to florida to see Dr marx.please keep signing the vweb page it lets us no that you all are still stroming heaven for tyler .thank everyone for all the cards ,money toys, prayers . you have made our lifes so much better

Wednesday, March 2, 2005 9:54 PM CST

Hello everyone
Sorry it’s been so long since I updated, Tyler is doing great, he helped me pick sticks up today and
He loved every sec of it, he kelp asking if I needed to rest as I watched him run to pick up a stick I started talking to god .and thanking him for just letting me be there with Tyler to see him smile and run , .he’s such a joy. I just thank god that I have this special little boy in my life. He got his j tube out
And it is doing ok it is healing good, we also talked to Dr O’Neal, his surgeon .he said that musc is third in the country , that he and the other dr can do Tyler’s surgery and that we wouldn’t have to travel such a long ways . But I still think we should have it done in Florida. But aim just the grandma so what ever is mom wants is what we will do I will be there for both Tyler and Ashley. Dr O’Neal did not say why we weren’t told that the leg bone had died in his jaw. We will return to the cancer dr on the 12th of April and we will have scans in April also. I won’t to thank you all for all the wonderful mail Tyler love it and it helps him to heal we have every litter and card and address saved for him . he is still having a lot of leg pain . as he grows that some of the pain will go away as his leg gets bigger ,he is eating and really doing good with that ,he is still in therapy four times a week. it seems to be helping. We no that we have God to thank. please keep praying for Tyler and our family as we continue to fight this battle with cancer. Tyler has proven over and over again how very strong he is. I won’t to thank happy days and all the people that helped us get to Florida. God will repay you all aim sure. Tyler wonted a puppy he ask for a black one .so we got him a Doberman pincher .her name is summer he loves her .and is taking really good care of her.
Well as I have said so many times before please keep signing Tyler’s page so we will no that you all are out there for us storming heaven. we love you all

Wednesday, March 2, 2005 9:44 PM CST

Hello everyone
Sorry it’s been so long since I updated, Tyler is doing great,he helped me pick sticks up today and
He loved every sec of it, he kelp asking if I needed to rest as I watched him run Hello everyone
Sorry it’s been so long since I updated, Tyler is doing great, he helped me pick sticks up today and
He loved every sec of it, he kelp asking if I needed to rest as I watched him run to pick up a stick I started talking to god .and thanking him for just letting me be there with Tyler to see him smile and run , .he’s such a joy. I just thank god that I have this special little boy in my life. He got his j tube out
And it is doing ok it is healing good, we also talked to Dr O’Neal, his surgeon .he said that musc is third in the country , that he and the other dr can do Tyler’s surgery and that we wouldn’t have to travel such a long ways . But I still think we should have it done in Florida. But aim just the grandma so what ever is mom wants is what we will do I will be there for both Tyler and Ashley. Dr O’Neal did not say why we weren’t told that the leg bone had died in his jaw. We will return to the cancer dr on the 12th of April and we will have scans in April also. I won’t to thank you all for all the wonderful mail Tyler love it and it helps him to heal we have every litter and card and address saved for him . he is still having a lot of leg pain . as he grows that some of the pain will go away as his leg gets bigger ,he is eating and really doing good with that ,he is still in therapy four times a week. it seems to be helping. We no that we have God to thank. please keep praying for Tyler and our family as we continue to fight this battle with cancer. Tyler has proven over and over again how very strong he is. I won’t to thank happy days and all the people that helped us get to Florida. God will repay you all aim sure. Tyler wonted a puppy he ask for a black one .so we got him a Doberman pincher .her name is summer he loves her .and is taking really good care of her.
Well as I have said so many times before please keep signing Tyler’s page so we will no that you all are out there for us storming heaven. we love you all

Wednesday, March 2, 2005 9:41 PM CST

Hello everyone
Sorry it’s been so long since I updated, Tyler is doing great, he helped me pick sticks up today and
He loved every sec of it, he kelp asking if I needed to rest as I watched him run to pick up a stick I started talking to god .and thanking him for just letting me be there with Tyler to see him smile and run , .he’s such a joy. I just thank god that I have this special little boy in my life. He got his j tube out
And it is doing ok it is healing good, we also talked to Dr O’Neal, his surgeon .he said that musc is third in the country , that he and the other dr can do Tyler’s surgery and that we wouldn’t have to travel such a long ways .But I still think we should have it done in Florida. But aim just the grandma so what ever is mom wants is what we will do I will be there for both Tyler and Ashley. Dr O’Neal did not say why we weren’t told that the leg bone had died in his jaw. We will return to the cancer dr on the 12th of April and we will have scans in April also. I won’t to thank you all for all the wonderful mail Tyler love it and it helps him to heal we have every litter and card and address saved for him . he is still having a lot of leg pain . as he grows that some of the pain will go away as his leg gets bigger ,he is eating and really doing good with that ,he is still in therapy four times a week. it seems to be helping. We no that we have God to thank. please keep praying for Tyler and our family as we continue to fight this battle with cancer. Tyler has proven over and over again how very strong he is. I won’t to thank happy days and all the people that helped us get to Florida. God will repay you all aim sure. Tyler wonted a puppy he ask for a black one .so we got him a Doberman pincher .her name is summer he loves her .and is taking really good care of her.
Well as I have said so many times before please keep signing Tyler’s page so we will no that you all are out there for us storming heaven. we love you all

Wednesday, March 2, 2005 8:47 PM CST

Hello everyone
Sorry it’s been so long since I updated, Tyler is doing great,he helped me pick sticks up today and
He loved every sec of it, he kelp asking if I needed to rest as I watched him run to pick up a stick I started talking to god . thanking him for just letting me be there with Tyler to see him smile and run .he’s such a joy.I just thank god that I have this special little boy in my life. He got his j tube out it is doing ok it is healing good,we also talked to Dr O’Neal, his surgeon .he said that musc is thirdin the country that he and the other dr can do Tyler’s surgery and that we wouldn’t have to travel such a long ways . But I still think we should have it done in Florida.But aim just the grandma so what ever mom wants is what we will do. I will be there for both Tyler and Ashley. Dr O’Neal did not say why we weren’t told that the leg bone had died in his jaw. We will return to the cancer dr on the 12th of April and we will have scans in April also. I won’t to thank you all for all the wonderful mail Tyler love it and it helps him to heal we have every letter and card and address saved for him . he is still having a lot of leg pain .as he grows some of the pain will go away as his leg gets bigger ,he is eating and really doing good with that ,he is still in therapy four times a week. it seems to be helping. We no that we have God to thank. please keep praying for Tyler and our family as we continue to fight this battle with cancer. Tyler has proven over and over again how very strong he is.I won’t to thank happy days and all the people that helped us get to Florida. God will repay you all aim sure. Tyler wonted a puppy he ask for a black one .so we got him a Doberman pincher .her name is summer he loves her .and is taking really good care of her.
Well as I have said so many times before please keep signing Tyler’s page so we will no that you all are out there for us storming heaven. we love you all.and thanks to all our church family.for all there prayers and suport.
NEW PHOTOES

Friday, February 25, 2005 7:55 PM CST

Hello everyone this is one of tyler and the family friends savannah. Darlene was really tried so she ask me to update to let you all no how tylers trip was to musc to get his J tube taking out she said everything went well but his little belly is hurting and is really sore. They made it home ok today.. Just keep praying for tyler and his family they are very strong for as much as they have been though.. Tyler still has alot to go though so keep him in your thoughts and prayers...
Darlene will update with more when she gets rested up We love you all Thank you god bless.

send donations to tylers paypal acc
at turpin10648@bellsouth.net

OR

Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131

Tyler was diagnosed with alveolar rhabdomyosarcoma of the mandible and lungs. He has had his right side of his jaw removed and reconstructed with his fibula. He has had part of his right lung removed. He has had many other surgeries too. His has had a years worth of chemo and almost six weeks of radiation. He is currently in remission but still has a 60hance he will relapse. He is in physical, occupational, and speech therapy.He has scans and goes to clinic once every three months.He also has to go see a lot of other doctors in Charleston.

Saturday, January 1, 2005 8:16 AM CST

WE THOUGH YOU ALL MIGHT WONT TO READ THIS,, WE STILL HAVE TO GO TO MUSC LIKE WE WERE DOING

CONSULTATION REPORT

PATIENT: TYLER TUCKER

EXAMINATION: 2/02/05

CHIEF COMPLAINT AND HISTORY OF PRESENT ILLNNESS: Tyler Tucker is a 4 year old boy who is referred to the University of Miami Center for Tumor and Reconstructive Surgery from the office of Dr. Wilson who is an Oral and Maxillofacial Surgeon in Greenville, South Carolina.
Tyler presents today accompanied by his parents who relate a history of rhabdomyosarcoma of the right posterior mandible diagnosed in January of 2003. He apparently underwent a limited excision at that time followed by chemotherapy in February and March of 2003. His parents relate a free microvascular fibula graft was performed in April of 2003 which has since resorbed resulting in a jaw deviation and absence of bone on the right side of the mandible. In addition, Tyler complains of consistent pain in his left leg which is the donor site of the fibula harvest. Apparently, chemotherapy was reinitiated in May of 2003 along with additional chemotherapy when a right upper lobe of the lung metastasis was discovered. Since completion of therapy in December of 2003, Tyler has been free of residual tumor and has returned to an active lifestyle. PAST MEDICAL HISTORY: Other than the rhabdomyosarcoma and its related treatments, Tyler has experienced only mild asthma. He currently takes Motrin for pain at the fibula donor site area and Fluocort. He has no known drug allergies. EXAMINATION: A clinical and radiographic examination today identifies an active 4 year old boy who is missing the right hemimandible from the condyle to approximately the canine area. There is a titanium plate cantilevered off the distal segment with three screws noted. There are also vascular clips and only a slight bony spicule remnant of the fibula graft. Despite the jaw deviation, Tyler is able to control this well and has a minimal facial concavity. The skin paddle of the flap is viable and in place in the oral cavity.There is no evidence of recurrent tumor and no evidence of infection at this time. The dentition is a fully developed deciduous dentition with permanent tooth buds present in the areas not affected by the tumor of the surgery.
IMPRESSION AND DISCUSSION: Related to reconstruction, I would defer any reconstruction attempts for at least two years. At this time, Tyler has undergone several surgeries and cancer treatments. Nevertheless, he is functioning well and has a reasonably good outward appearance. His speech is also minimally hampered by his current jaw position. Therefore, there is no immediate need to restore him at this time. I would prefer to consider bone graft reconstruction after the age of six or even seven years. At that time, his permanent teeth are beginning to erupt and it would be ideal to position his jaws in their proper alignment coordinated with the eruption of these teeth.
I would not recommend a free vascular transfer due to the complications associated with this approach as Tyler has already experienced and the minimal outcome of a fibula which is a bone too small and too straight for jaw reconstruction. Instead, I would consider a cancellous marrow graft with either a costochondral rib harvest for the joint articulation or an allogeneic mandible crib for the same purpose. As an alternative, Tyler may be a candidate for recombinant bone morphogeneic protein bone induction for this type of reconstruction. At this time, we will follow Tyler’s progress on an annual basis and plan for corrective surgery in approximately two years in the future.

Hello everyone We are back home. First I won’t to thank you all for your kindness With out your help we couldn’t have taken Tyler to see Dr Marx in Florida. All went well with the trip all one thousand and eight hundred miles. God blessed us all the way. well that’s the good new now the bad news. We went in to the office Tyler was taken to get x-rays of his jaw.The Dr came in and I started to tell him that Dr oneil was wanting to place a metal piece in Tyler’s jaw and that there would be a screw that Ashley would have to turn every day. He said that tyler wasn't a good canidate for that surgery. I ask why he said that the bone from the from his leg had died in his jaw.He said he only had a small piece of it left and a metal platein his jaw. We will have to be very careful with Tyler. I don’t understand why we were not already told this.It looks like they would have known from all his scans. He said that Tyler needs Drs with a lot of experience to do his surgeries.He said that itsa not that the doctors at MUSC are great doctors they just dont have the experiance to deal with Tylers jaw surgeries. He said that the surgery the fibula flap might have been a good idea at the time but in the long run it didn't work.He said that alot of people have leg pain from it just like Tyler is another reason he dosen't like to do them. He was hoping as Tyler grows and the bone gets stronger that part of the pain in Tyler's leg will stop. Dr marx said that he wants to do Tyler’s next jaw replacement because he has the experience.He said he will take a rib or part of his tylers hip to replace the jaw bone. He also said that there is a new procedure he is waiting to be approved were they take bone marrow and put it in his jaw and wire it shut and the bone marrow will harden into bone. He said it might be approved by the time Tyler is supposed to have his next surgery.Plans now are to let Tyler be a boy for a little while that we return to Florida next January. So that Dr marx can see how much he has grown and start getting things ready for Tyler’s surgery around his sixth birthday. He said that we need to keep going to musc ,and to all the Drs there because that Tyler has to be moniterd closely. Tyler will not only have to have this surgery, but will have more in the future. He said that we need to start planning for our trips to Florida with fundraisers and that Ashley needs to get Tyler off the first choice . Which is a hmo that blocked medicade from paying the Drs. Tyler is still in therapy four times a week for his speech and leg. We got home and Ashley had a bill that she owed ten thousand dollars for therapy .First choice paid fifteen thousand and she still owes the rest. Please keep praying for him and our family. We are own a roller coaster.The end seems far away,But I no God will guide us. Tyler has had many complications from the cancer.Ashley wants all of you to know that she loves all the Drs at musc hospital that they were doing what they thought was right for Tyler, and that they did save our our little mans life. We thank god each day for all they do to help all the children at musc hospital. We may try to sell a few things on eBay to raise money. There was a Summerville news artical on Tyler that was Jan 21 05. There is a musc hospital news paper that is doing another artical on him in Charleston. There is going to be a golf tournament for Tyler in Charleston on the twenty first of February .Debbie Stephens of happy days has a account for Tyler so anyone wanting to help with Tyler’s medical and traveling expense can send to address at the bottom of this page .He has had eighteen surgeries.It is so important that we get Tyler the best care possible.I know I have had to ask for a lot,but if can help him I will set in front of Wal-Mart with a jar collecting pennies this little boy is my heart. One more thing as you read this if you would like to help know that we appreciate all of it, but if you feel you shouldn’t help then just don’t but don’t say hurtful things. We already are going through so much. We love you all. Thank you god bless.
send donations to tylers paypal acc
at turpin10648@bellsouth.net
OR
Deborah P. Stephenson
Happy Days and Special Times
1622 Ashley Hall Road Charleston, SC 29407
Work: (843) 571-4336
Fax: (843) 571-4394
Home: (843) 552-3131
Tyler was diagnosed with alveolar rhabdomyosarcoma of the mandible and lungs. He has had his right side of his jaw removed and reconstructed with his fibula. He has had part of his right lung removed. He has had many other surgeries too. His has had a years worth of chemo and almost six weeks of radiation. He is currently in remission but still has a 60hance he will relapse. He is in physical, occupational, and speech therapy.He has scans and goes to clinic once every three months.He also has to go see a lot of other doctors in Charleston.

Sunday, December 12, 2004 11:41 AM CST

NEW PHOTOS IN PHOTO ALBUM
.God will bless you .Hello Every one i wont to thank you all.your kindness will never be forgotton.tyler has recived a lot of snail mail and gifts and gift cards,you all are wonderfull careing people, we love you all. we will update page afther christmas,once again thank you .and have a wonderfull merry christmas Tyler is stillhaveing pain in his leg. He wakes up crying ashley has to rub it and give him pain meds. His little belly is still draining around the tube. Its real sore. He will see Dr wilson here in greenville on the 30th. Then clinic Drs and scans on the 4th of jan.He will see Dr oneil on the 6th of jan about his jaw surgeries they are trying to get him seen at the shrinners hospital here in greenville Ashley just signed for them to get Tyler's records . Maybe it wont be too long . He is still in therapy three times a a week. He is talking much better. They are going to try to get him into a pre school program.Someone has taken peoples emails off the careing bridge pages and are emailing bad things to the emails address, Some people have emailed me ,and said that they were not going to sign any more. Please ask on your page that these mean people please stop this. We love all the people that care and signs tylers page. Hes been sick a long time, and when people sign we know that they care. Tyler has been through many surgeries in two years. Some of the chrildren have earned their wings. Don't give their families any more pain. So if you don't want to sign don't, but please dont hurt the people that love and care about these kids.I want to thank all of you for the snail mail.Tyler loves it.He smiles and tears the mail open. This helps these chrildren to heal. So please go to one of the pages and drop a card or a small gift. You too can make a child smile. WE HAVE NEW EMAIL ADDRESS.
turpin10648@bellsouth.net.any one needing to call us can call 864-605-0237 Please pray for Tyler and all the other sick children .This is stressful both emotionally and financially.
Christmas will soon be here and our family and all the other sick children familles are going through so much. God will bless you for helping these children.
Love
Tyler and Family

Tuesday, November 30, 2004 4:33 PM CST

Hi everyone WE HAVE NEW EMAIL ADDRESS,
turpin10648@bellsouth.net.any one needing to call us can call 864-605-0237
We just got back from charleston yesterday. We had a great time at the Happy Days party, and met alot of new people. Tyler had a ball playing pass the parcel. Happy Days also took us to see with out a paddle. It was really funny. Sunday we took Tyler to see spongebob. He loved it. On monday we went to see Dr.Oneil. He is refering us to the greenville shriners hospital for them to try to figure out why Tyler's leg is still hurting. He also wants us to see Dr. Wilson (the oral surgeon who found his cancer). He said he needs his input on Tylers next jaw surgery. We will see him on december 30th. Dr.Oneil said that Tyler was one of the rare cases where the bone and flap in his jaw didn't drop like it was supposed too and tyler didn't gain function in his jaw like he was supposed too. That is why we have to see Dr.wilson. He also wants Dr.day's (ENT surgeon) input. Dr.Day and Dr.Oneil will most likely do the surgery together like they did the first one. Tyler has to go have scans and go to clinic on jan 4th. Then on the 6th we go back to see Dr.Oneil to find out exactly what they will do on the next jaw surgery. Please pray for Tyler and all the other sick children ,and thanks Happy days we love you guys.This is stressful both emotionally and financially.
You dont know how much it means to our family, to know how much you care

Christmas will soon be here and our family, and all the other sick children familles are going through so much. God will bless you for helping these children,
Love
Tyler and Family

Tuesday, November 16, 2004 6:53 AM CST

Hello everyone,
Tyler has had a great week . He has cried with his leg, and his little foot is turning under. His j tube is looking red around it, and he has a cough.
We will be going to Charleston for some fun on saturday the 27th. Happy days is having there Christmas party and we are invited to bring tyler.They will also be getting our room and taking us to the movies after the party. Then Sunday morning breakfast. What a wonderful group of people they are. Thank you happy days of Charleston. Then on Monday
Tyler will be seeing Dr Oneil about his jaw surgery. He was supposed to talk to Dr Day and then let us know what kind of jaw surgery Tyler will be haveing.The bone that was placed in Tyler's jaw is not growing. They have mentioned a couple driffrent ways that they might fix his jaw. One was to place a screw in there that Ashley would have to turn each day with some kind of tool, but they seem to tell us something diffrent each time we go. Please pray that he will be ok. Tyler will have scans again on Jan 4th. He will also visit the clinic on the 4th of Jan. Please keep praying that his cancer will stay in remission.I want to thank all of you for the wonderful mail and gifts. Thank you for loving Tyler.
Savannah and Derick thank you for all the spiderman toys, all the little pants sets the diapars,and all the stuff you sent for Tyler. We really appreciate it. He looks so cute in them. Please keep signing his web page guest book.Ashley and Darlene[NANNY] reads it all.
please don't forget about Tyler and his family,he has come a long way but still must go through a lot, he has been a very strong little boy, what a trooper if you can please pick a child and send mail, or if you can adopt a child for Christmas please do so these familles need your help and really appreciate all you do, it dosnt have to be Tyler, just pick a child, Christmas will soon be here and our family, and all the other sick children familles are going through so much. God will bless you for helping these children,
As always I just keep my faith, and Know that God is with us. Please keep praying for Tyler and our family. This is stressful both emotionally and financially.You dont know how much it means to our family, to know how much you care. ps, tyler got to talk to mrs savannah, he told her he loves her and thank you,and she was able to understand what he said ,thank you savannah
new pictures are own the photo album

NOV-04 - 2004 7:57 AM CDT

everyone conner has earned his wings along with cheyenne they are playing in heaven now.playing with maxie and nikki, please pray for all the familys,conner, maxie had same cancer tyler has,
Hello everyone
first the snail mail. this is wonderful and helps these children so much, thank you
they love it, it puts smiles on there faces . and helps them feel better, if you can please pick a child and send mail, or if you can adopt a child for Christmas please do so these familles need your help and really appreciate all you do, it dosnt have to be Tyler, just pick a child, Christmas will soon be here and our family, and all the other sick children familles are going through so much. God will bless you for helping these children,
wanted to update let you all no that Tyler is still doing OK, but is having l
pain in that leg, he cries and says it hurts him all the time, his little foot is trying to
turn under, his belly still not healed up, but he has started eating a little more,
he even ate a corn dog,frist time Monday, and even ask for more, he is still going to therapy three time a week, he dose OK with the big people, but will not play much
with the children, all he has been around is adults, he was in the hospital. in bed. most of 2003, except for a couple of months, and has been in the hospital four times in 2004, aim sure that he will start playing with other children soon, he is talking better and better each day, some people cant understand him, but we do most the time, we will not have any more clinic visits till around the first of DEC and we will also see the surgeon on 12th of DEC, he is supposed to let us no when Tyler's surgery will be, they have been telling us sometime around jan .and that he may have to have the trach back again . gosh i sure hope not. they were talking about taking the bone from his other leg and placing it in his jaw, when they do this bone wont grow. so he has to have more surgeries as he grows we are praying about it we will take Tyler again for scans the end of DEC or the first of Jan. they are going to call with app.,also please pray for all the other sick children, and pray for the families that there children have earned there wings and gone on to heaven ,
. As always I just keep my faith, and Know that God is with us. Please keep praying for Tyler and our family. This is stressful both emotionally and financially.
You dont know how much it means to our family, to know how much you care. Please keep signing Tyler's guest book because Ashley and Darlene[NANNY] reads it all.

Tuesday, August 10, 2004 10:09 AM CDT

Tyler is eating a little more ,thank God
Hello Everyone
We went to clinic yesterday and, as soon as we walked in the door they put us in isolation. They told us that Tyler had some kind of enterococcus bacteria that is resistant to vanq in his g-tube. They said he can't be around any of the other kids in clinic because their immune systems are low and they wouldn't be able to fight it off. They also said for us to stay away from elderly people too.And sick people, They also notified DHEC that he had it. They aren't going to treat it. They said the only way to get rid of it is to get his g-tube out and get the hole closed because it comes from open wounds. The dietician came and talked to us about trying to get Tyler to eat more. She told me to leave him unhooked for five days to see if he will eat more and to write down everything he eats. I have to call her in five days to let her know how he did. If he dosen't eat or drink like he is supposed to I will have to hook him up before the five days. She also told me to try to get him to take his meds by mouth. If he will they can take out the g-tube and leave the j-tube. They want to leave the j-tube for a while even if he dose eat because his next jaw sugery will most likley be at the begining of next year and he will have to have it to eat for a while then. They want him to be off of chemo for a year before they do the surgery. We also went to the dentist and a preop appointment. The dentist said when they get in the operating room he is going to do about six x-rays to see exactly what all needs to be fixed, clean his teeth, and do a floride treatment. He will go into the orperating room on the 19th. Then in september he will go back to the plastic surgeon and he will go to clinic in october. Please pray that Tyler's g-tube dosen't get worse and that his leg stops hurting. Please pray for Flash and her husband Charlie who also has cancer.

Love
Tyler and Family

Sunday, August 1, 2004 8:02 AM CDT

Hello, Tyller had his scans ,praise God,they came back and the spot was gone.He is doing good right now,We will go back to Charleston next sunday he has three Dr appointments on monday, Then we will return again on the 18th and 19th he will have some dental surgery that must be done in the operating room .On the 12th of sep-he will go back to the surgeon to see what they are going to do about his little jaw and mouth ,it has really started going side ways ,as he is getting bigger,people are starting to
notice it more,The trip to Charleston is just four hrs but it seems like it gets longer each trip.He is such a good boy he rides the 4 hrs and never complains,what a little trooper, Godhas been good to us ,please keep praying for Tyler and our family.He still has a lot to go through ,he has four or five more surgeries on his jaw and face,he still has pain and is still takeing the pain meds,he still has both the g and the j tube, he is fed in the j tube the g tube is for meds only,He is eating a little, his g tube still hasnt sealed,This is painful.We thank everyone that has helped us with gas food and motels,i dont no what we would do with out your kindnessWe want to thank walmart they put jars out and gave us 250.00 to help Tyler {Thank you walmart} God bless each of you.any one wanting to help our family there is address at the bottom of this web page,I thank God each day that there are people that care and wont to help,and i thank him each day for Tyler andAshley ,I pray that we all will be strong for the long journey ahead of Tyler,ashley and our family.and i also pray for all our little friends that are sooo sick , I tell tyler every day that i love him ,he now tells us each day that he loves us, he will give us a kiss,he is learning to talk ,and is doing really good ,new words each day .he wears his brace and that has helped with the leg pain some,He loves his therapist,that he sees two times aweek and says he wonts to go play,he will say play -Polly,his therapy was three times a week but they now havecombine one of them,please as you read Tylers web page go sign his guest book ,it means a lot to our family we read all of it

Tuesday, July 27, 2004 4:43 PM CDT

TYLER HAS SOME NEW PICTURES ON HIS WEB PAGE , HE GOES FOR SCANS ON THE 29TH PLEASE PRAY THAT THAT SPOT IS GONE AND THERE WILL BE NO CANCER ,PLEASE KEEP SIGNING HIS WEB PAGE . IT DOSE US SO MUCH GOOD TO NO THAT YOU ALL WITH US IN PRAYER GOD BLESS EACH ONE OF YOU
Thursday, July 15, 2004 7:43 PM CDT

well we go for scans 29th ,please pray that there are no cancer,that the spot is gone ,tyler is still haveing a lot of pain
Hi Everyone
We went to charleston to see the plastic surgeon on the 12th. He said that something was going to have to be done about Tyler's jaw because the left side is growing and the right isn't. The right side is were they put the bone from his leg. He dosen't know when though. He said he has to talk to the ENT and oral surgeon so they can decide what needs to be done and when. He also said that he dosen't want to do anything until the next scans are done just in case the cancer is back. The oncologist are supposed to call me sometime soon with the appointment for the scans. The place were they took out his port in at the end of may still has not healed. It is taking it along time to heal. If it dosen't heal in a week the surgeon said I need to carry him back to the doctor. We would like to thank the tummble weed foundation and happy days and special times for the money thay put on our food card. We love you guys, we are going to Charleston once a week lately,
any one wanting to help tyler and his family can send donations to CCB bank 2600, old Anderson rd Greenville SC 29611. in the name of Darlene Cox for Tyler Tucker.
or Happy Days 1622 Ashley Hall RD, Charleston SC -PHONE 843-571-4336 all donations must have Tylers name on it,so they will no it goes to him,
. Well i guess i better go Tyler is outside catching lightening bugs. PLease pray for Tyler and all of the other sick kids. and please pray hard for michaela,we got a email saying she only has a month if that long.
http://www.caringbridge.org/sd/michaela/
Love
Tyler and Family

Ps i forgot to tell you all, that Tylers daddy is now giveing him thirty dollars a week ,and is spending a lot of time with him,Tyler loves his daddy,and is enjoying the time they spend togeather,



--------------------------------------------------------------------------------

Thursday, July 15, 2004 7:43 PM CDT

well we go for scans 29th ,please pray that there are no cancer,that the spot is gone ,tyler is still haveing a lot of pain
Hi Everyone
We went to charleston to see the plastic surgeon on the 12th. He said that something was going to have to be done about Tyler's jaw because the left side is growing and the right isn't. The right side is were they put the bone from his leg. He dosen't know when though. He said he has to talk to the ENT and oral surgeon so they can decide what needs to be done and when. He also said that he dosen't want to do anything until the next scans are done just in case the cancer is back. The oncologist are supposed to call me sometime soon with the appointment for the scans. The place were they took out his port in at the end of may still has not healed. It is taking it along time to heal. If it dosen't heal in a week the surgeon said I need to carry him back to the doctor. We would like to thank the tummble weed foundation and happy days and special times for the money thay put on our food card. We love you guys, we are going to Charleston once a week lately,
any one wanting to help tyler and his family can send donations to CCB bank 2600, old Anderson rd Greenville SC 29611. in the name of Darlene Cox for Tyler Tucker.
or Happy Days 1622 Ashley Hall RD, Charleston SC -PHONE 843-571-4336 all donations must have Tylers name on it,so they will no it goes to him,
. Well i guess i better go Tyler is outside catching lightening bugs. PLease pray for Tyler and all of the other sick kids. and please pray hard for michaela,we got a email saying she only has a month if that long.
http://www.caringbridge.org/sd/michaela/
Love
Tyler and Family

Ps i forgot to tell you all, that Tylers daddy is now giveing him thirty dollars a week ,and is spending a lot of time with him,Tyler loves his daddy,and is enjoying the time they spend togeather,

Thursday, July 8, 2004 12:31 AM CDT

Hello Everyone
Sorry its been a while since we last updated. Tyler is doing ok. He got his scans on the 29th. Then we got a call saying that there was a small spot in the lower part of his left lung and that they were going to decide what to do about it in tumor board. I got a call from the doctor yesterday after they had tumor board. She said that they didn't see waht the radiologist was talking about. So they are going to do scans in a month to see if something is still there just to be sure. They said maybe it was a vessel acting funny or something. On july fourth tyler j-tube got pulled out. We ended up having to go to the er here, and they put a temporary tube in until we could go to charleston to get another j-tube put in. We got up at 4 o'clock in the morning on tuesday and went to Charleston. When we got there kathy jakes (the g&j tube specialist) came and put another j-tube in. She also gave me an extra one in case it came out again. That was hard driving to charleston and back in the same day. We were wore out. Tyler even went to bed early. He hardly ever dose that unless he is sick. We have to leave sunday and go back and see the plastic surgeon. Then we go back august 9th for a pre op appointment,go to clinic, and see a dentist. Then on the 19th of august he will go in to the opperating room for dental work. He is doing great in therapy. His physical and speech therapist are even going to take his swimming to work with his leg. He will love that. He is talking a little more now too. Please pray that the next scans will be clear and for all of our other sick friends.
love
Tyler and Family

Friday, June 25, 2004 8:15 AM CDT

Ashley will update Tylers page next thursday when she finds out what the drs are going to do about the spot they found in his left lung,please keep praying
this spot was not there on the last three scans,THEY SAID A SMALL SPOT,but that is what they said last time and he end up loseing his uper part of his right lung.

Hello everyone
Sorry its been so long updating Tyty's page. This is Darlene, and I'm going to try to update for you. Ashley is having to take Tyler to the therapy two times a week ,and He clings to her all the time.She is such a wonderful mom. She spends all her time with him. She says he is the reason she gets up in the mourning.If I miss spell please just look over it. Ashley looked in Tyler's mouth and found a spot. His mouth also looks a little puffy on the side that he had the cancer taken out. She took him to the dentist here, but was told that we wouldn't know if it was cancer or not until the scans are done. They will be on the 29th. IT will be a few days after that before we know
anything. Please keep praying that everting will be fine on them. He also is having some neck and jaw pain. His leg is still hurting him too. He is wearing his brace on it, but still cries and says it hurts. His J and G tube are Still draining and have not sealed yet.This is painful and burns him. I have to sit and blow on his little belly a lot. So I got him a little hand held fan.We will return to Charleston on the 28th for an appointments with his cancer Drs. and the scans are the next day.We go july 12th to see the surgeon. They told Ashley that they might need to put something in Tyler's mouth to expand the right side to make room for bone, and she would have to turn a bolt of some kind to widen it each day. This would mean another operation, but all this is what we have been told we will not know until we see the surgeon again. They have been known to change their minds.Now for the good part. Tyler is playing some ,and his little smile will melt your heart. He has learned some new words and is talking pretty well at this time. He is a really strong little boy ,and he has also started eating a little pizza. Every day he tells me he wants pizzie. He can't say pizza. So I go and get him a Dominos pizza. It was wonderful when I saw him eat a whole slice. I also want to thank the three people that sent packages to Tyler. He loves getting mail it makes him smile, and he loves tearing into the boxes. God bless you.
As always I just keep my faith, and Know that God is with us. Please keep praying for Tyler and our family. This is stressful both emotionally and financially.
You dont know how much it means to our family, to know how much you care. Please keep signing Tyler's guest book because Ashley reads it all.
Ps My foot is all better and I'm walking fine on it.
Love,
Tyler and Family

Thursday, June 25, 2004 6:45 PM CDT

Hello everyone
Sorry its been so long updating TTY's page. Well, this is Darlene, and aim going to try to update for you. Ashley is having to take Tyler to the therapy three times a week and Tyler clings to her all the time.
So if I miss spell or something please just look over it.
Ashley looked in Tyler's mouth, found a spot, his mouth looks a little puffy on the side he had the cancer taken out.
She took him to the dentist hear, but was told that we wouldn't no if it was cancer or not till scans were done, they will be on the 29th. IT will be a few days after that before we no
anything. please keep praying that everting will be fine, That this cancer will still be in remission. he also is having some neck and jaw pain,,his leg is still hurting him , he is wearing his brace on it, but still cries and says it hurts. his J and G tube are
Still draining, and haunt sealed yet.
This is painful and burns him. I have to sit and blow on his little belly a lot, so I got him a little hand helt fan.
We will return to Charleston on the twenty eight for appointments, to see his cancer Drs. and on the twenty ninth for scans. again on the twelfth to seethe surgeon. they had told Ashley that they migth need to put something in Tyler's mouth that would pull it back straight and she would have to turn it with a ranch of some kind to tighten it each day. this would mean another operation, and that they may even have to go ahead with the jaw reconstruction, but all this is what we have been told we do not no till we seethe DRS. again, they have been know to change there minds,
Then he has app-on the of august at musc hospital. And then he will be amitted on the 19th of august, The dinist is going to go in and do some work in his mouth, that he has to be put to sleep and in the hospital.
Now for the good part. Tyler is playing some. and his little smile will melt your heart, he has learned some new words and is talking pretty well at this time. he is a really strong little boy. and he has also started eating a little pizza. every day he tells me he wont's pizzie. he cant say pizza. so nanny go, s and gets a Domino, pizza for him.. it was wonderful when i saw him eat a whole slice,
I also want to thank the three people that sent packages to Tyler. He loves getting mail it makes him smile. and he loves tearing into the boxes, God bless you.
As always I just keep my faith, and no that God is with us. Please keep praying for Tyler and our family. this is stressful both emotionally and financially.
You dot no how much it means to our family, to no how much you care, please keep signing Tyler's guest book because Ashley reads it all.
ps- my foot is all better and iam walking fine on it.
Love
Tyler and Family

Thursday, June 3, 2004 8:51 AM CDT

HELLO EVERYONE
WE ARE AT HOME AGAIN AFTER TYLER BEEING ADMITTED TWICE TO MUSC IN TWO WEEKS. HE HAD HIS SURGERY TO TAKE HIS PORT OUT BECAUSE OF THE STAPH INFECTION. HE DID REALLY GOOD, BUT WE GOT HOME AND HIS STOMACH WAS HURTING AND HIS G & J TUBES WERE REALLY RED. HE WAS SCREAMING IN PAIN SO WE TOOK HIM TO THE ER HERE IN GREENVILLE. THE DOCTOR THOUGHT HE HAD A FUNGAL INFECTION AROUND HIS TUBES AND SENT US HOME WITH SOME NYSTATIN POWDER. WHEN WE GOT HOME HE CONTINUED CRYING SO I CALLED DOCTOR SULTAN. HE TOLD ME TO BRING HIM TO MUSC TO BE ADMITTED. THEY SAID HE HAD CHEMICAL BURNS FROM THE STUFF DRAINING FROM AROUND HIS G TUBE. HE IS BACK AT HOME NOW, BUT IS STILL IN A LOT OF PAIN. HIS LEG AND STOMACH ARE STILL HURTING. HE STILL HAS THAT STUFF DRAINING OUT OF HIS TUBE .THEY SAY IT SHOULD SEAL AROUND IT BEFORE LONG.
HE IS STILL TAKEING ALL THE PAIN MEDS. PLEASE KEEP PRAYING FOR TYLER AND OUR FAMILY. I KNOW THAT THIS IS THE DEVILS WORK MAKING TYLER SO SICK, BUT GOD IS WITH US HOLDING OUR HANDS ALL THE WAY. IF HE WASN’T I DON’T THINK TYLER WOULD BE HERE. . TYLER LOOKS REAL GOOD AND HES GOT HIS HAIR BACK
HE S GOT A SMILE, THAT JUST TAKES YOUR HEART, AND HE GIVES US THE SWEETEST LITTLE KISSES. HE EVEN GAVE DR YORK AND HIS NURSE LANE A KISS. HE IS LEARNING NEW WORDS EVERY DAY, AND IS STILL IN THERAPY THREE TIMES A WEEK. HE HAS HAD TO MISS IT A LOT IN THE PASS TWO WEEKS. HE HAS GOT HIS BRACE, BUT NOW WE CAN’T FIND A SHOE THAT WILL FIT THE BRACE. WE ARE STILL LOOKING, HE CANT WEAR IT WITH OUT A SHOE. I GUESS WE WILL HAVE TO LOOK AT PLACES THAT HAVE WIDE SHOES.
WE ARE HAVING A REALLY HARD TIME FINANCIALY WE HAVE GOT TO GO BACK TO MUSC ON THE 8TH AND AGAIN ON THE 28TH AND 27TH,
GAS IS SOOO HIGH AND FOOD TOO. OUR FOOD CARD IS EMPTY
IF ANY ONE OUT THERE WOULD LKE TO PUT SOMETHING ON OUR FOOD CARD AT MUSC. YOU CAN CALL JOYCE RIVERS (SOCIAL WORKER ) SHE WILL TELL YOU HOW TO PUT MONEY ON OUR FOOD CARD. HER NUMBER IS 843-792-9460. THIS WOULD BE A BIG HELP TO OUR FAMILY.
I CANT WORK AND ONLY GET THREE HUNDRED A MONTH FOR TYLERS. TYLER IS STILL IN DIAPERS AND NEEDS OTHER THINGS.
IF ANY OF YOU WOULD LIKE TO HELP THIS WOULD BE GREAT,
AND REALLY APPRECIATED. ALSO THIS WONDERFULL LADY LET US STAY A COUPLE OF NIGHTS IN HER APARTMENT. SHE WAS SOOOO NICE TO US
AND THIS WAS BIG A HELP. WE WANT HER TO KNOW THAT WE THANK HER SO MUCH.
WELL GOT TO GO GET THINGS PACKED TO GO BACK TO MUSC. I SHOULD JUST LEAVE OUR BAGS PACKED I GUESS. PLEASE REMBER TO SIGN TYTYS WEB PAGE, WE ALREADY KNOW YOU ARE PRAYING FOR TYLER AND OUR FAMILY,BUT IT MAKES US FEEL SO GOOD TO BE ABLE TO READ YOUR NOTES .THANK YOU JODIE FOR PUTTING THE PICTURES ON TYLERS PAGE FOR US. THANKS TO EVERYONE WHO HAS HELPED WITH TYLERS PAGE
GOD BLESS EACH OF YOU AND KEEP STORMING HEAVEN. I KNOW PRAYER WORKS AND IT IS WORKING FOR TYLER
LOVE TYLER AND FAMILY

Thursday, May 27, 2004 8:03 AM CDT

HELLO EVERYONE
WE HAVE HAD A REALLY BAD WEEK. Tyler started coughing alot so I took him to his peditrician. She said that he was wheezing and had a virus. Later that night he spiked a temp to 101.2 and had to go to the ER. They ended up sticking him three times before they got his port to work. I dont think they knew what they were doing. They drew blood cultures and did x-rays os his chest and neck. The X- rays came out clear and the blood cultures wouldnt be back for at least 24 hours. The next day we had to come to charleston to pick up Tyler's brace. He ran a 101 temp the whole way there. So we had to see Dr.Brown and he called greenville to check his blood cultures and they came back positive. This is his 6th staph infection so they decided that his port needed to come out. This is yhe 2nd time hehas had to have his port pulled. He went into surgery yesterday. They took out his port, cauterized his J-tube, and replaced his g-tube. Then he came back to the room and they needed to get his antibiotic levels . They tried to get blood from his iv but it wouldnt work so they had to stick. They ended up sticking his hand and couldnt get anything so they had to stick his foot. He is felling alot better today. PLease keep praying for Tyler and our family. We appriciate all of the phone calls. We will be in charleston for a while. We may also haveto bring the camper back.GOD BLESS YOU

Tyler and Family

Friday, May 14, 2004 1:15 PM CDT

Hello Everyone
Sorry we haven't updated in while. We went to Charleston on tuesday for Tylers scans. He had an MRI done of his leg and to see the oncologist because Tyler had a viris on saterday and sunday. It took a while. Then we went back to our hotel because papa wasn't feeling all that great. On wensday went went to visit Flash and all our other friends at happy days. They took us out to eat at TBONZ. We had a great time and the food was wonderful. We really appriciate everything they do for us. On thursday we went to see the ortopedic surgeon about Tyler's MRI. He siad that Tyler's fibula wasn't gronig back, but that was expected that sometimes it won't. He also said if it did grow any it would be a small amount. He aslo said Tyler had alot of weakness in his foot that puting a strain on his leg and causing pain in his leg. He wants Tyler to wear a brace for a while and that if he dosen't his foot will start to curve under and possibly become deformed. He said to keep giving him his pain meds. So we went from his office to the doctor who will make his brace. Tyler picked marvin tne martian and blue strapes to go on his brace. We go back to pick up his brace on the 25th. We then came back home. Tyler starting crying with his leg hurting as soon as we got home and i had to give him pain medicine. I can't wait until he gets his brace. His leg should stop hurting as much then. We go back to the on the 7th or 8th of june. We are supposed to go ont the 8th but Im going to see if they will switch it to the 7th because thats when Dr.Kraveka is there and she is the oncologist he usualy sees. He will also go the endocrine doctor on the 8th and have scans at the end of june. He will go back to Dr.Oneil(plastic surgeon) on the 11th of july. He will decide when Tylers next surgery will be. He said that if his jaw slips more than it already has he might have to go a head and have another surgery. Tyler is still not eating enough so they went up on his magace (appetite stimulant) to try to get him to eat more. They also told me to keep him at 10 hour feeds instead of 14 hours. I hope he starts eating. Please keep praying forTyler and our friends. Connor is having a really hard time and Lakota is to. They all need alot of prayers.
LOVE
Tyler and Family

Monday, April 26, 2004 2:45 PM CDT

Hello everyone
Our plans have changed. We dont have to go to Charleston on tuesday. Tyler has caught a very bad cold so the doctors can't put him to sleep for his scans. They are goning to plan on doing them around the begining of may. Hopefully he will be over the cold by then. He will also see the orthopedic surgeon when he goes back. We also had to change his dentist appointment to may fifth. We hope he will be well enough thursday so he can go to his physical and speech therapy. I don't think he will get to go to his occupational therapy on tuesday. He is starting to pick up a few more words . He is learning so fast. His legs are still bothering him. He runs on his tip toes and walks on them if he has been on his feet for a while.Thats ok though at least he is still walking. He still takes his pain meds too. he also still gets fed through his feeding tube but he has picked up eating a good bit. I hope will eat enough soon so that he dosen't need the tubes. We got to go to church sunday for the first time in a while. Tyler was a little scared because of all the people but after a while he eased up and had a good time. We all enjoyed being able to go. I would like to think everyone who donated stuff for tylers yardsale and new life baptist church. With out these people it never would have went as great as it did. We will update again in few days to let you know how Tyler is doing. Please keep praying for Tyler and our family. Say a prayer for all the other sick children too.
Love
Tyler and Famliy
DRs Called ,scans on the 11th and seeing surgeon on the 13th.PLEASE KEEP PRAYING FOR TYTY

Saturday, April 24, 2004 5:42 PM CDT

Tyler is doing great this week. He is having to go to therapy three times a week instead of two. He did want to go this week. He cried this week. I hope he does better next week. he also has started eating a little bit more than he usually does. We have to go back to Charleston on tuesday to get an MRI of his leg so they can figure out why it is hurting. We will also probably have to see an orthopedic surgeon. I would like to thank new life baptist church for doing the benifit sell. It went great. There are some incredible people there. On another note for the person who put the smart comments on Tyler's guest book please keep your comments to yourself you hurt someones feelings. Those kind of comments are not appropriate for a childs guest book. We will update again on Tyler again after we see the doctor.

Love
Ashley & Tyler

Tuesday, April 20, 2004 4:39 AM CDT

HELLO EVERYONE
SORRY NOT TO UPDATE IN SO LONG BUT WAS WAITING TO SEE WHAT THE DRS SAID.
WELL WE WENT TO CHARLESTON. BOY THAT TRIP SEEMS TO GET LONGER EACH TIME.
TYLER SEEN DR KRAVEKA. SHES A WONDERFULL DR . AND SHE LOVES TYTY SO MUCH . SHE CHECKED HIM OUT AND SAID HE WAS DOING REALLY GOOD. SHE SAID THAT THE PAIN IN HIS LEG AND IT GIVEING AWAY ON HIM WAS FROM THE SCAR THAT IT HAD GROWN INTO A MUSSELL. THAT THERE MAY BE SOME NERVE DAMAGE. THAT WE WERE TO COME BACK IN A FEW WEEKS AND GET A MRI AND ALSO SEE A SURGEON. THAT TYTY WAS GOING TO
HAVE TO HAVE SOME SURGERY ON HIS LEG.SO HE WOULDNT HURT SO MUCH. BUT THING CHANGES. TALKING TO DRIFFRENT DRS SO WE WILL JUST HAVE TO WAIT AND SEE WHAT THE SURGEON SAYS.SHE WAS MAKEING APPOINTMENT AND WOULD CALL AND TELL US WHEN TO BE THERE AND WHO WE WERE SEEING. SHE SAID THAT WE WOULD NEED TO STAY IN CHARLESTON A FEW DAYS .
TYLER CRYED SO MUCH ONE NIGHT WE STARTED TO TAKE HIM TO THE ER. BUT ABOUT THIRTY MINUTES AND PAIN MEDICATION WAS GIVEN THE FELT A LITTLE BETTER.BUT WASNT ABLE TO SLEEP ALL NIGHT.
SHE ALSO SAID THAT WE HAD TO GET HIM EATING SOME WAY , AND TO CUT BACK ON HIS FEEDS.IN HIS FEEDING TUB TO TEN HERS .
BUT WE WILL HAVE TO MAKE SURE HE DOSNT START TO LOSE WEIGHT.
THIS COULD MAKE HIM REAL SICK IF HE DOSNT GET ALL THE VITAMINS HE NEEDS FOR HIS LITTLE BODY.
KEEP PRAYING FOR TYLER . HES HAS COME A LONG WAYS .BUT HE STILL HAS FOUR OR FIVE JAW RECONSTRUCTION SURGERYS
AND HIS LEG SURGEY. BUT HE IS SO STRONG . AND GOD HAS BEEN SO GOOD TO OUR FAMILY AND TYLER . WITHOUT GOD I DONT THINK WE WOULD HAVE MADE IT . GOD KELP OUR LITTLE TYTY WITH US AND KELP US IN FOOD AND GAS .FOR THE LAST FOURTEEN MONTHS.
AND I THANK HIM EACH DAY .
TYLER ALSO HAS TO HAVE HIS FEEDING TUB CARTERZIED A COUPLE OF TIMES A WEEK . AND THIS HURTS HIM .
HE IS IN SPEECH THERAPY.TRYING TO LEARN HIM TO TALK . AND TO HELP WITH HIS JAW .HE IS LEARNING NEW WORDS EVERY DAY.
HE ALSO HAS LEG THERAPY , HE SEES A THERAPIST TWO TIME A WEEK ,HE WILL BE SEEING A DENTIST ONCE A MONTH.HE DOSNT HAVE HARDLY ANY TEETH LEFT BUT THEY SAID THAT HE WAS GOING TO HAVE A LOT OF TROUBLE WITH HIS MOUTH AND JAW IN THE FURTHER.
ALSO TYLERS LITTLE FRIEND WALKER NEEDS YOUR PRAYERS .HE IS TWO YEARS OLD AND A SICK LITTLE BOY . PLEASE PRAY FOR WALKER .
DR KARAVER SAID THAT TYLERS TUMOR WAS VERY LARGE THAT IT HAD SPREAD TO HIS LUNGS AND EVEN THOW THEY HAD GOTTON IT ALL. THAT THERE COULD BE A FIBER POP UP SOME WHER AND THAT TYLERS CANCER COULD COME BACK . BUT I FEEL THAT GOD IS GOING TO KEEP TYLER IN REMISSION AND THAT HE WILL LIVE TO HAVE A LONG HAPPY LIFE WORKING IN SOME WAY FOR THE LORD.
PLEASE KEEP OUR FAMILY IN YOUR PRAYERS
GOD BLESS AND THANK ALL OF YOU PLEASE SIGN TYTYS WEB PAGE .
PS , TYLER BENFIT YARD SALE THIS WEEKEND AT NEW LIFT BAPIST
CHURCH IN FRONT OF WEST SIDE PARK HERE IN GREENVILLE. IF RAIN SALE WILL BE INSIDE OF CHURCH .
NEW PICTURES ARE IN THE ALBUM

LOVE FROM TYLER AND FAMILY

Wednesday, April 7, 2004 2:44 PM CDT

Hello everyone,
docters from MUSC called and cancelled all of tyler's appointments for the 5th, they said he had been seen on the 24th for scans and the scans appeared clear,so they wanted to rescheduled docters appointments for the 19th because of all the docters leaving for a convention.
Tyler has been sick the past past few days but not from the cancer,he was taken to the docter here in Greenville and the docter there said there's a possibility he could have walking pneumonia and was put on zithromax.He has been coughing alot and throwing up due to the cold or phneumonia.
He goes to therapy tommorow for speech,occupational,and physical thoerapy,his leg has been giving out as of late causing him to fall.
Tyler also starts seeing a dentist once a month becuase the docters say he's going to have trouble with chewing and other related problems due to his jaw surgery.he is such a strong little boy.
Tyler still remains on his tube at night for feeds because of his lack of appetite, he will only eat a few bites and it's not enough to get him off of the feeds,he's also still on his pain medication for pain due to his back,leg and jaw pains that he cries with every night,Ashley has to rube his leg's and back each night till he falls asleep.....
Please keep Tyler and family in your prayers, God so good. and has been with tyler and our family.As soon as we go back to MUSC we shall update you guys further.
Everyone remember Tyler's benifit yardsale the 24th at New Life Baptist Church here in Greenville.

Love Tyler and family.

Friday, March 26, 2004 5:11 AM CST

HELLO
WELL WE TOOK TYLER BACK TO CHARLESTON AT MUSC ON THE 23rd FOR HIS SCANS .HE HAD BONE SCAN, MRI , AND CT. HE DID OK WITH THE SCANS, BUT HE COULDN'T BREATH GOOD SO THEY HAD TO SUCTION HIS LUNGS OUT. THE NURSE SAID THAT HE HAD A LOT OF YELLOW SMELLY STUFF THAT WAS IN THE LUNGS.THE SCANS TOOK ALL DAY AND WE LEFT TO COME BACK TO GREENVILLE AROUND FOUR.ASHLEY CALLED TO CHECK ON THE SACNS AND THAY SAID THAT TYLER HAD ACTIVE LYMPH NODES. WE DON'T KNOW WHAT THAT MENT BUT WE THINK IT MIGHT BE FROM ALL THE CONGESTION .THEY ARE GOING TO REVEIW THE SCANS AGAIN IN A MEETING EITHER THIS WEEK OR NEXT WEEK.THEY SAID NOT TO DO ANYTHING DIFFERENT THAT RIGHT NOW THE PLAN IS STILL TO DO SCANS AGAIN IN THREE MONTHS. WE GO BACK TO THE DOCTOR ON THE FITH OF APRIL.
HE HAS HAD BLOOD IN HIS G-TUBE , AND WAS PUT ON MEDICATION FOR IT ,BUT IF IT HASN'T STOPPED IN A WEEK WE HAVE TO CALL DR SULTAN. HE MIGHT HAVE TO BE SCOPED AGAIN.HE STILL WONT EAT. SO HE IS STILL ON HIS FEEDS AT NIGHT. HE IS STILL HAVEING PAIN IN HIS JAW AND LEG AND IS STILL ON HIS PAIN MEDICATION .
HE IS STARTING PHYSICAL THERAPY, SPEECH, AND OCCUPATIONAL THERAPY EVERY THURSDAY HERE IN GREENVILLE.
I THANK GOD EVERY DAY FOR TYLER AND FOR BEING THERE WITH US ALL THE WAY .I THINK HE HAS SOMTHING SPECIAL PLANNED FOR ASHLEY AND TYLER. SHES ONE STRONG MAMA ,AND LOVES THAT LITTLE BOY WITH ALL HER HEART.PLEASE KEEP PRAYING FOR OUR FAMILY AND TYLER.THERES GOING TO BE A BENEFIT -YARD SALE ON APRIL 24TH AT NEW LIFE BATPIST CHURCH IN GREENVILLE. ACROSS FROM WEST SIDE PARK. IF YOU NEED INFORMATION ON THIS OR HAVE A DONATION-CALL MARTHA AT 864-277-1771 OR GAIL AT 864-884-4787.

GOD BLESS EACH OF YOU
LOVE TYLER AND FAMILY

Tyler You Will Be Healed In Jesus Name!!

Wednesday, March 10, 2004 5:02 PM CST

HELLO EVERYONE
WE WENT TO THE DRS MONDAY . AND I DO MEAN DRS TWO OF THEM. TOOK US TILL FIVE. BOY WAS WE WORE OUT.
TYLER HAS BEEN HAVEING A LOT OF PAIN IN HIS JAW AND LEG.THEY GAVE HIM A DRIFFRANT PAIN MEDICINE. WELL THAT WASNT SO GOOD FOR TYLER HE WAS LIKE A WILD MAN .ASHLEY HAD HER HANDS FULL . HE DIDNT GO TO SLEEP TILL THREE IN THE MORNING . THEY HAD TO TAKE HIM BACK OFF OF IT AND PUT HIM BACK ON HIS MORNFIN AND OXycodene.
TYLER CRYS EVERY NIGHT WITH HIS LEG AND JAW HURTING .tyler was not born with this .the cancer ate his jaw bone away and they had to take a bone from his leg to put in the jaw . the bone in his jaw will not grow. so tyler will have to have more surgeries to put other bones in his jaw. the cancer also spread to his lungs. and he had to have the right uper part of his lung taken out .the chemo and radition took care of the left side
THEY ALSO PUT TYLER ON MEDS TO MAKE HIM EAT. AND PRAISE GOD IT IS WORKING . HE WAS EATING MORE TODAY. BUT NOT WHAT HE NEEDS TO TAKE THE TUBS OUT.HE WILL STILL NEED TO BE FEED AT NIGHT THROUGH HIS TUB.
THE SURGEN SAID THAT TYLER WAS GOING TO HAVE TO HAVE MORE JAW SERGERY.to bring him back to him in four months and that if his JAW WAS PULLED OVER JUST A LITTLE MORE THAN IT IS NOW HE WOULD HAVE TO GO AHEAD AND PLAN HIS NEXT SUGERY .PLEASE KEEP PRAYING FOR TYLER.
WE DID BRING THE CAMPER HOME COULDNT AFFORD TO LEAVE IT THERE ANY LONGER. THE SOCIAL WORKER SAID THAT IT WOULD BE OK IF WE TRYED TO GET A BENFIT STARTED .TO HELP PAY FOR GAS AND FOOD AND MOTEL ROOMS . WE HAVE GOT TO GO TO CHARLESTON ON THE TWENTY THIRD FOR SCANS . AND THEM AGAIN TO THE DR ON THE FIFTH AND AGAIN IN TWO WEEKS FROM THEN . GOINGING FROM GREENVILLE TO CHARLESTON THREE TIME A MONTH CAN BE EXPENSIVE.
BUT I NO GOD WILL MAKE A WAY I JUST PUT ALL MY FAITH IN GOD . ALL OF YOU HAVE BEEN SO WONDERFULL TO OUR FAMILY
WITH OUT GOD, AND YOU ALL WE WOULDNT HAVE GOTTON THIS FAR. GOD WILL BLESS EACH OF YOU ,OUR FAMILY APERCATES EVERYTHING THAT HAS BEEN DONE TO HELP US.
PLEASE KEEP VISTING TYTYS PAGE AND SIGNING IT .WE NEED YOUR PRAYERS AND IT MEANS SO MUCH TO NO HOW MUCH YOU ALL CARE ABOUT THIS LITTLE GUY . ALSO WE ATTACHED A WEB PAGE FROM SMILE QUILTS, YOU WILL SEE THE LINK ON THE BOTTOM OF HIS WEB PAGE .TAKE A LOOK . IT IS BEAUTFULL .
AND WE SURE THANK THEM .

IF ANY OF YOU NO OF A WAY TO HAVE A BENFIT FOR TYLER PEASE LET US NO ASHLEY CANT WORK AND TYLER IS STILL IN DIAPERS HE CANT BE TRAINED TILL HES OFF FEEDING TUB.SHE HAS TO BUY SOME MEDITATION THAT MEDICADE REFUSED TO PAY FOR. AND TAPE FOR HIS BELLY. THESE TRIPS COST WE ARE GETTING SHORT ON MONEY. IF ANY OF YOU WOULD LIKE TO HELP.
DONATIONDS TO HELP TYLERS FAMILY AND TYLER.CAN BE SENT TO CCB BANK- 2600-OLD ANDERSON RD GREENVILLE SC 29611 OR SENT TO HAPPY DAYS OF CHARLESTON. DARLENE COX FOR TYLER TUCKER.1622 ASHLEY HALL RD . BUT IF SENT TO HAPPY DAYS IT MUST HAVE TYLERS NAME ON IT.
IT HAS BEEN FOURTEEN MONTHS SINCE
TYLERS CANCER WAS FOUND IAM PRAYING SO HARD THAT IT WILL STAY IN REMISSION . TYLERS CANCER IS VERY RARE ONLY ABOUT TEN CHRILDREN IN THE USA HAVE RHABOMYOSARCOMA-[ALVEOLOR]THE TYPE HE HAS. SOME OF THEM HAVE PASSED AWAY.
PLEASE KEEP PRAYING FOR TYLER AND OUR FAMILY.
LOVE FROM TYLER TUCKER AND FAMILY

Wednesday, March 10, 2004 5:02 PM CST

HELLO EVERYONE
WE WENT TO THE DRS MONDAY . AND I DO MEAN DRS TWO OF THEM. TOOK US TILL FIVE. BOY WAS WE WORE OUT.
TYLER HAS BEEN HAVEING A LOT OF PAIN IN HIS JAW AND LEG.THEY GAVE HIM A DRIFFRANT PAIN MEDICINE. WELL THAT WASNT SO GOOD FOR TYLER HE WAS LIKE A WILD MAN .ASHLEY HAD HER HANDS FULL . HE DIDNT GO TO SLEEP TILL THREE IN THE MORNING . THEY HAD TO TAKE HIM BACK OFF OF IT AND PUT HIM BACK ON HIS MORNFIN AND OXycodene.
TYLER CRYS EVERY NIGHT WITH HIS LEG AND JAW HURTING .tyler was not born with this .the cancer ate his jaw bone away and they had to take a bone from his leg to put in the jaw . the bone in his jaw will not grow. so tyler will have to have more surgeries to put other bones in his jaw. the cancer also spread to his lungs. and he had to have the right uper part of his lung taken out .the chemo and radition took care of the left side
THEY ALSO PUT TYLER ON MEDS TO MAKE HIM EAT. AND PRAISE GOD IT IS WORKING . HE WAS EATING MORE TODAY. BUT NOT WHAT HE NEEDS TO TAKE THE TUBS OUT.HE WILL STILL NEED TO BE FEED AT NIGHT THROUGH HIS TUB.
THE SURGEN SAID THAT TYLER WAS GOING TO HAVE TO HAVE MORE JAW SERGERY.to bring him back to him in four months and that if his JAW WAS PULLED OVER JUST A LITTLE MORE THAN IT IS NOW HE WOULD HAVE TO GO AHEAD AND PLAN HIS NEXT SUGERY .PLEASE KEEP PRAYING FOR TYLER.
WE DID BRING THE CAMPER HOME COULDNT AFFORD TO LEAVE IT THERE ANY LONGER. THE SOCIAL WORKER SAID THAT IT WOULD BE OK IF WE TRYED TO GET A BENFIT STARTED .TO HELP PAY FOR GAS AND FOOD AND MOTEL ROOMS . WE HAVE GOT TO GO TO CHARLESTON ON THE TWENTY THIRD FOR SCANS . AND THEM AGAIN TO THE DR ON THE FIFTH AND AGAIN IN TWO WEEKS FROM THEN . GOINGING FROM GREENVILLE TO CHARLESTON THREE TIME A MONTH CAN BE EXPENSIVE.
BUT I NO GOD WILL MAKE A WAY I JUST PUT ALL MY FAITH IN GOD . ALL OF YOU HAVE BEEN SO WONDERFULL TO OUR FAMILY
WITH OUT GOD, AND YOU ALL WE WOULDNT HAVE GOTTON THIS FAR. GOD WILL BLESS EACH OF YOU ,OUR FAMILY APERCATES EVERYTHING THAT HAS BEEN DONE TO HELP US.
PLEASE KEEP VISTING TYTYS PAGE AND SIGNING IT .WE NEED YOUR PRAYERS AND IT MEANS SO MUCH TO NO HOW MUCH YOU ALL CARE ABOUT THIS LITTLE GUY . ALSO WE ATTACHED A WEB PAGE FROM SMILE QUILTS, YOU WILL SEE THE LINK ON THE BOTTOM OF HIS WEB PAGE .TAKE A LOOK . IT IS BEAUTFULL .
AND WE SURE THANK THEM .

IF ANY OF YOU NO OF A WAY TO HAVE A BENFIT FOR TYLER PEASE LET US NO ASHLEY CANT WORK AND TYLER IS STILL IN DIAPERS HE CANT BE TRAINED TILL HES OFF FEEDING TUB.SHE HAS TO BUY SOME MEDITATION THAT MEDICADE REFUSED TO PAY FOR. AND TAPE FOR HIS BELLY. THESE TRIPS COST WE ARE GETTING SHORT ON MONEY. IF ANY OF YOU WOULD LIKE TO HELP.
DONATIONDS TO HELP TYLERS FAMILY AND TYLER.CAN BE SENT TO CCB BANK- 2600-OLD ANDERSON RD GREENVILLE SC 29611 OR SENT TO HAPPY DAYS OF CHARLESTON. DARLENE COX FOR TYLER TUCKER.1622 ASHLEY HALL RD . BUT IF SENT TO HAPPY DAYS IT MUST HAVE TYLERS NAME ON IT.
IT HAS BEEN FOURTEEN MONTHS SINCE
TYLERS CANCER WAS FOUND IAM PRAYING SO HARD THAT IT WILL STAY IN REMISSION . TYLERS CANCER IS VERY RARE ONLY ABOUT TEN CHRILDREN IN THE USA HAVE RHABOMYOSARCOMA-[ALVEOLOR]THE TYPE HE HAS. SOME OF THEM HAVE PASSED AWAY.
PLEASE KEEP PRAYING FOR TYLER AND OUR FAMILY.
LOVE FROM TYLER TUCKER AND FAMILY

Wednesday, February 25, 2004 8:40 AM CST

HELLO EVERYONE TYLER HAS RHABOMYOSARCOMA-SUB TYPE-ALVEOLAR
HEES AT HOME IN GREENVILLE.
TYLER IS DOING GREAT.HE LOOKS REALLY GOOD . AND HAS BEEN PLAYING.AND WATCHING HIS DVDS.HE REALLY IS ENJOYING BEING HOME.
HE STILL HAS HIS FEEDING TUBS AND HE STILL HAS HIS PORTA CAFH.AND IS BEING HOOKED UP 18 HRS AT NIGHT TO HIS FEEDS.
HE STILL WILL NOT EAT . IT HAS BEEN A WHILE SENCE HIS CANCER WENT IN REMISSION AND HIS CHEMO WAS STOPED, HE SOULD BE EATING BUT WANT.
HE RETURNS TO CHARLESTON TO SEE HIS DRS ON THE EIGHT OF MARCH.
HE WILL HAVE SCANS ON THE TWENTY THIRD AT MUSC TO SEE IF HIS CANCER IS STILL IN REMISSION.PLEASE ALL OF YOU KEEP TYLER IN YOUR PRAYERS . WITH GODS HELP HE HAS COME A LONG WAY .
TYLERS JAW IS STILL DROPING. AND WHEN HE LAUGHTS OR CRYS HIS LIPS ARE GOING OVER TO ONE SIDE A LITTLE BIT. WE STILL HAVENT HEARD WHAT THEY WANT TO DO . HE STILL HAS PAIN IN HIS NECK JAW AND LEGS HE IS STILL ON HIS PAIN MEDICTIONS . MAYBE WE WILL FIND OUT ON THE 8TH.

HE WAS SUSPOSE TO START THERAPY ON HIS SPEECH BUT NO ONE HAS SHOWED UP FOR THAT , TYLER IS PICKING UP A FEW MORE WORDS.
BUT NEEDS TO LEARN A LOT MORE HE ONLY SAYING NOW ABOUT TWENTY OR TWENTY FIVE WORDS . HE SHOULD BE SAYING 1000 WORDS AT AGE THREE. HES ALSO WALKING ON HIS TOES AND WILL
NEED THERAPY ON THAT AS WELL HIS FOOT IS TURNING OUT A LITTLE . THIS WAS FROM THE BONE BEING TAKEN OUT OF HIS LEG TO BE PLACED IN HIS JAW.BUT SITLL ALL THIS CAN BE FIXED .,
I WANT TO THANK EACH OF YOU THAT HAVE HELPED US GET THROUGH
2003 IT WAS ROUGH. WITH YOUR PRAYERS AND ALL THE HELP WE HAD FROM SO MANY CAREING PEOPLE.
SOME GAVE MONEY FOR US TO TRAVEL AND TO FEED US AND OTHERS GAVE FOOD AND GIFTS SOME HELPED PAYING THE CAMPER SPACE SO WE COULD STAY IN CHARLESTON WITH TYLER.
OTHERS GAVE CHRISTMAS TO TYLER AND ASHLEY.WE EVEN GOT THE WONDERFULL TRIP TO DISNEY FROM A COUPLE OF WONDERFULL PEOPLE IN CHARLESTON . SOMETHING WE WOULD NEVER HAD BEEN ABLE TO AFORD TO GIVE TYLER.GOD WILL REPAY YOU ALL IN HIS WAY FOR YOUR WONDERFULL KINDNESS.

I PRAY ALL THE TIME FOR TYLER AND I FEEL IN MY HEART THAT GOD HAS PLANED SOMETHING SPECIAL FOR THIS LITTLE BOY .
AND MAYBE OUR FAMILY TOO.
HIS MOMMY HAS BEEN SO VERY STRONG SHES HAD TO WATCH HER LITTLE BOY SUFFER AND GO THROUGH PAIN AND TUBES. 10 SURGERIES. HEES BEEN IN INTENSCARE ABOUT FOUR TIMES
THAT HORRIABLE CHEMO AND RADITION.PART OF HIS RIGHT LUNG BEING TAKEN OUT .THE INFECTIONS. THE LONG STAYS AT THE HOSPITAL BUT GOD WAS WITH HER ALL THE WAY .I PRAY FOR ALL THE CHRILDREN AT MUSC HOSPITAL.AND THERE FAMILES THEY ALL
ARE NEEDING YOUR PRAYERS.

PLEASE REMEMBER TO GO SIGN TYTYS WEB PAGE YOU JUST DONT NO HOW MUCH THAT HAS MENT TO ASHLEY GEORGE AND I
LOVE FROM TYLER
AND FAMILY.

PS. IT FEELS SO GOOD TO BE HOME A WHILE

Tuesday, February 10, 2004 5:14 PM CST

HELLO EVERONE
WELL OUR TRIP WAS WONDERFULL. THE MOTEL WAS SUPER WITH A LARGE POOL AND NICE BED ROOMS.THEY HAD A FREE ALL YOU WANT TO EAT BREAKFAST BAR EACH DAY. THERE WAS A LOT TO DO AT OUR MOTEL.THERE WAS FACE PAINTING FOR THE KIDS, BINGO AND A GAME ROOM .WE ALL LOVED IT .
WE ALL LOVED DISNEY BUT NOT AS MUCH AS TYLER. HE RODE A LOT OF RIDES AND PLAYED GAMES . HE WAS SUCH A HAPPY LITTLE BOY.
WE REALLY APPERCATED EVERYONE THAT HELPED GETTING THIS TRIP FOR US. UNIVERSAL STUDIOS AND SEA WORLD WERE GREAT TOO.
WE GOT BACK HOME ON SATURDAY AND TOOK TYLER TO THE DR ON MONDAY. HE IS HAVEING A LOT OF JAW AND LEG PAIN, AND IS STILL ON HIS PAIN MEDICINES.
HE STILL HAS HIS PORT A CATH AND HIS FEEDING TUBES . HE IS BEING FED AT NIGHT.HE WILL ONLY TAKE A BITE AND OF
FRIES OR CHIP AND THEN HOLDS IT IN HIS HAND .AND LOOKS AT IT .HE ACTS AS IF HE WANTS TO EAT IT AND WONT.WE ARE HOPING THIS WILL GET BETTER SOON.
DR.YORK SAID THAT SHE WONDERED IF TYLER MIGHT HAVE SOME MUSCLE DAMAGE IN HIS LEG WERE THE BONE WAS TAKEN OUT. HE IS GOING TO HAVE TO HAVE PHYSICAL THERPY AGAIN FOR HIS LEG. HE IS ALSO GONIG TO HAVE TO SEE A SPEECH THERPIST AND DENTIST ONCE A MONTH. HE ISN'T SAYING AS MANY WORDS AS HE SHOULD BE ABLE TO, BUT HE IS CATCHING ON QUICK. WE ARE GOING TO BE BRING THE CAMPER HOME AT THE END OF THE MONTH TO SAVE SOME MONEY FOR TYLERS NEXT SURGERIES. WE DON'T KNOW WHEN THEY WILL BE YET ,BUT HE STILL HAS A FEW MORE TO GO. PLEASE KEEEP PRAYING for TYLER AND OUR FAMILY.

LOVE,
TYLER AND FAMILY

PS. THERE ARE NEW PICTURES IN THE PICTURE ALBUM.

Tuesday, January 27, 2004 11:14 AM CST

HELLO EVERYONE
TYLER WENT TO SEE DR DAY ,DR BESTY DAVIS ,AND DR BACHE YESTERDAY.
THEY ARE NOT SURE WHAT THEY WANT TO DO ABOUT TYLERS MOUTH .THEY ARE GOING TO LOOK AT HIS SCANS AND MAKE A DISSION ON WHAT SHOULD BE DONE . ONE SAYS SOMETHING SHOULD BE DONE RIGHT A WAY AND THE OTHER ONE WANTS TO WAIT . TYLERS TOUNGE AND MOUTH ARE GOING TO ONE SIDE.
THEY WILL HAVE ANOTHER MEETING AND LET US KNOW WHAT DECIDE TO DO.
TYLER IS DOING GREAT .WE WERE ABLE TO TAKE HIM TO THE PARK AND HE PLAYED ALL DAY.
I WANTED TO TELL EVERONE THAT THERE ARE SOME REALLY GREAT PEOPLE HERE. TYLER AND HIS FAMILY HAVE BEEN GIVEN A TRIP TO DISNEY. ALL EXSPENCES PAID. WE WANT TO SAY THANKS
TO MR AND MRS DOUG BERNGER AND MR AND MRS PERRY HUNSICKER.
THEY HAVE REALLY WORKED HARD TO MAKE THIS DREAM COME TRUE FOR OUR FAMILY.AFTER THE YEAR 2003 WE REALLY NEED THIS TRIP .WE APERCATE ALL THAT THEY HAVE DONE FOR US.WE WILL BE LEAVEING THIS FRIDAY FOR A WEEK IN FLA.
WE WILL HAVE TO STILL HOOK TYLER UP TO HIS FEEDS AT NIGHT
BECAUSE HE STILL WONT EAT.
THE DRS SAID IT WAS FINE FOR HIM TO GO.
WE WANT TO THANK ERIN HUNSICKER SHE HAS TAKEN US OUT TO EAT MANY TIMES AND SPENT LOTS OF TIME WITH US . SHE SURE HAS MADE OUR LIVES A LOT BETTER HERE IN CHARLESTON . THANKS ERIN WE LOVE YOU.
ALSO MR BOB BAKER IS LETTING US DRIVE HIS SUV DOWN TO FLA.
SO A GREAT BIG THANK YOU TO HIM .GOD HAS BLESSED US IN SO MANY WAYS .WITHOUT GODS BLESSINGS WE WOULDNT NO ALL THESE WONDERFULL PEOPLE AND TYLER WOULDNT BE HERE . I KNOW GOD PULLED TYLER AND OUR FAMILY THREW THIS AND I AM LOOKING FOR 2004 TO A BETTER YEAR.
THANKS TO ALL THE WONDERFULL PEOPLE THAT HAVE HELPED US STAY HERE WITH TYLER. WE COULDNT HAVE DONE IT WITH OUT ALL OF YOU.
GOD BLESS
LOVE TYLER AND FAMILY

Monday, January 12, 2004 12:29 AM CST

HELLO EVERYONE WE WENT TO THE DR TODAY ,AND GOOD NEWS TYLERS CANCER IS IN REMISSION. PRAISE THE LORD . LETS ALL KEEP PRAYING THAT THIS AWFULL CANCER NEVERS COMES BACK .
THIS WAS WONDERFULL NEWS ,BUT TYLER IS NOT OVER EVERTHING . HE STILL BEING FEED WITH HIS FEEDING TUB EIGHTEEN HRS A DAY , AND HE STILL HAS HIS PORTACATH.HE WILL HAVE TO HAVE THIS A LONG TIME YET . TYLER IS FACEING MORE SURGERIES AT LEAST THREE OR FOUR. THEY WILL HAVE TO TAKE BONES FROM HIS BODY TO PUT IN HIS FACE. HES ALSO FACEING GETTING HIS MOUTH WIRED AGAIN BECAUSE HIS LITTLE MOUTH IS PULLING TO ONE SIDE AND IS CAUSING PAIN IN HIS NECK.
HE WILL BE WIRED AT LEAST SIX TO EIGHT WEEKS WE WILL SEE DR DAY ABOUT THIS ON THE TWENTYSIXTH.TYLER HAS HAD A REALLY BAD YEAR FOR 2003 ,BUT HE HAS BEEN SO STRONG .HES SUCH A SPECIAL LTTLE BOY . LETS ALL PRAY THAT HE WILL HAVE A MUCH BETTER YEAR THIS YEAR.
ALSO THANKS SO MUCH FOR ALL THE FOOD-GIFT CARDS AND MONEY THAT HAS BEEN GIVEN TO HELP OUR FAMILY .
THANK EACH OF YOU . WE WOULD NOT HAVE BEEN ABLE TO STAY HERE WITH OUT YOUR DONATIONS .GOD BLESS EACH OF YOU.
THE JARS ARE STILL OUT BECAUSE OF THE SURGIERS COMEING UP.
GOD HAS BEEN WITH US AND MOST OF ALL I THANK GOD.
TYLER WILL SURVIVE THIS . PLEASE JUST KEEP HIM ALWAYS IN YOUR PRAYERS . THE DRS HAS TOLD ASHLEY THAT HE WILL MOST LIKLEY GET A TRACH BACK WHEN HE HAS THESES SURIGERS.
WE THANK ALL THE DRS AND NURSES AND SOCIAL WORKER AT MUSC THEY HAVE BEEN WONDERFULL.THESE ARE GODS SPECIAL PEOPLE.KEEP THEM IN YOUR PRAYER AS THEY TRY TO SAVE THESE CHRILDREN.
AND DONT FORGET TO PRAY FOR OUR FAMILY
LOVE TYLERS FAMILY

PS THERS A LADY THAT HELPED US FROM
MOTLEYRICE ATT. TINA JOHNSON
SHE HAS BEEN WONDERFULL . SHES SICK HER SELF . BUT STILL GOT OUT AND TRYED TO HELP OUR FAMILY. GOD BLESS YOU TINA.
AND DAVID.
GOD BLESS ALL THE PEOPLE AT MOTLEY RICE THAT SENT FOOD TOYS AND MONEY . YOU ALL REALLY NO THE MEANING OF [LOVE] YOU ARE TURLEY GODS CHRILDREN .

Friday, December 26, 2003 8:51 AM CST

HELLO
TYLER IS IN GREENVILLE .HE HAS HAD THE BEST CHRISTMAS.
HE HAS BEEN A REAL HAPPY LITTLE BOYS .WITH LOTS OF TOYS .
YOU ALL MADE THIS A WONDERFULL CHRISTMAS FOR OUR FAMILY AND TYLER. NOT ONLY WITH THE GIFTS , BUT WITH THE PRAYERS.
GOD ANSWER,S PRAYER . AND I REALLY BELIVE THAT WITH ALL MY HEART.
HE HAS BEEN PLAYING AND HAS EVEN EATEN A LITTLE .
AND HASNT THREW UP FROM HIS FEEDING TUB BUT A FEW TIMES.
THE HOME HELTH NURSE CAME OUT AND GOT BLOOD , AND WHEN IT WAS CHECKED IT WAS ALL GOOD.PRAISE THE LORD .
ASHLEY ALSO HAD A REALLY GOOD CHRISTMAS. ASHLEY GEORGE AND I /GOT THE BEST GIFT OF ALL . WE GOT TO HAVE TYTY WITH US AT HOME FOR CHRISTMASS.
TYLER,S JAW
HAS DROPPED. THEY SAID THAT THEY MAY HAVE TO REWIRE HIS JAW SHUT/ HE HAS HAD THIS DONE ONCE BEFORE.IT IS ALFULL SO PLEASE PRAY THAT HE WONT HAVE TO HAVE THIS DONE. IF THEY DO THIS IT WILL BE WIRED SIX TO EIGHT WEEKS .
WE WILL RETURN ON MOMDAY TO CHARLESTON . HE HAS SCANS ON TUESDAY .
THIS WILL BE A FULL BODY SCAN TO SEE IF HIS CANCER IS IN REMISSION . PLEASE KEEP PRAYING THAT ALL THIS ALLFULL CANCER IS GONE AND DOSNT RETURN.
THAT THERE WILL BE NO SIGNS OF IT IN HIS LITTLE JAW OR LUNGGS OR ANY WHER ELES IN HIS LITTLE BODY

I ALSO WANT TO TELL YOU ALL THAT TYLER LOOKS WONDERFULL. THAT THE NURSES AND DRS AND STAFF AT MUSC HAVE BEEN JUST WONDERFUL.
THEY HAVE SHOWED US THE REAL MEANING OF LOVE . THESE NURSES ,DRS AND STAFF TAKE CARE OF PLAY WITH AND TREAT THESE CHRILDREN AS THERE OWN . OUR FAMILY HAS BEEN TREATED AS IF WE WERE A PART OF THERE FAMILY .THEY ARE TURLEY A GIFT FROM GOD.
AND TYLER LOVES THEM . HE THINKS THAT CHARLESTON IS HOME.
THANK EVERONE SO MUCH . KEEP PRAYING AND I WILL ALWAYS KEEP MY FAITH IN THE LORD ABOVE.
TYLER IS NOT OVER THIS HE HAS MORE SURGERIES . ON HIS LITTLE JAW AND FACE.
I WILL TRY TO KEEP YOU UPDATED ON THIS PAGE.
WE HOPE THAT YOU ALL HAD A WONDERFULL CHRISTMAS . AND WILL HAVE A WONDERFULL NEWYEAR. SOME NEW PITCRES IN ALUBM
LOVE FROM TYLER AND FAMILY

Friday, December 12, 2003 5:21 PM CST

HELLO
TYLER GOT HIS BIG CHEMO ON THE 8TH .HE SEEMS TO BE DOING OK SO FAR. THIS IS HIS LAST CHEMO . FOR NOW .THE DRS SAID HE WOULDN'T HAVE TO HAVE ANYMORE UNLESS HIS CANCER RETURNS . THERE IS A SIXTY PERCENT CHANCE THAT COULD HAPPEN ,BUT IF IT SHOULD THE DRS AT MUSC WOULD START A NEW CHEMO TREATMENT PLAN ON HIM . THEY WOULD NEVER GIVE UP ON HIM . THEY SAID THAT HES THEIR MIRACLE BABY.
ASHLEY AND I DONT THINK THAT THE CANCER WILL COME BACK.THERE ARE TO MANY PEOPLE PRAYING FOR LITTLE TYLER . HES IN GODS HANDS . WE WILL STILL HAVE TO BE IN CHARLESTON FOR A WHILE. HE HAS DRS APOINTMENTS EVER WEEK.
HE ALSO HAS SCANS COMEING UP AROUND JANUARY . THIS WILL TELL US IF HIS CANCER IS IN REMISSION.
HE STILL IS ON A FEEDING TUB FOR EIGHTEEN HRS A DAY .HE ALSO STILL HAS HIS PORTACATH.
THIS WILL NOT BE REMOVED FOR AT LEAST A YEAR.

PLEASE KEEP PRAYING FOR HIM . I KNOW THAT GOD HAS BEEN WITH US AND WILL BE WITH US TILL THIS HORRIABLE CANCER IS CURED. OUR TURST IN THE LORD HAS GOT US WHERE WE ARE TODAY. I THANK HIM WITH ALL MY HEART FOR OUR LITTLE MAN STILL BEING HERE WITH US .

HIS HOME HEALTH NURSE CAME OUT TODAY TO TAKE BLOOD . HE HAS A APPOINTMENT MONDAY WITH HIS DRS . THIS LITTLE BOY IS SO STRONG AND HAS BEEN THREW SO MUCH , BUT BOUNCES BACK EACH TIME. I DON'T THINK I COULD HAVE STOOD THE PAIN THAT HE HAS BEEN THREW.

IF ALL GOES WELL WE PLAN TO COME HOME FOR CHRISTMAS.
AND BE THERE A WEEK OR TWO .

WE WANT TO THANK EACH OF YOU. YOU ALL HAVE BEEN WONDERFULL, AND WE REALLY APRCIATE ALL THAT HAS BEEN DONE WITH OUT YOU WE COULDN'T HAVE GOT THIS FAR. GOD BLESS EACH OF YOU
REMBER TO SIGN TY TY'S WEB PAGE .

ps. tyler ened up in the hospital on the 16th counts went down and he got a temp . but he is still getting to come home for christmas . expect to leave charleston this sat .he will have a nurse comeing out to our home .to do blood work. and make sure hees ok,
tyler has the most wonderfull Drs and Nurses in the world.
LOVE TYLER AND FAMILY

Monday, December 1, 2003 7:01 PM CST

HELLO
TYLER HAD HIS CHEMO .AND HIS DRS SAID THAT WE COULD BRING HIM TO GREENVILLE.
SO SATURDAY WE WENT TO A CHRISTMASS PARTY THAT HAPPY DAYS WAS HAVEING.WE HAD LOTS OF FUN AND HE EVEN GOT A NICE GIFT AND GOT TO SEE SPONGE BOB .HE ALSO SAW A SPECIAL FRIEND HOLLY THERE AND SHE PLAYED WITH HIM. THEY HAD GAMES THAT ASHLEY REALLY ENJOYED AND WE MEET LOTS OF OTHER FAMILEYS THAT THERE CHRILDREN HAD CANCER .THEY HAD PLEANTY OF FOOD THANKS HAPPY DAYS FOR A WONDERFULL TIME.WE ARE LUCKY TO BE A PART OF HAPPY DAYS .

WE GOT TO GREENVILLE AND TYLER WAS SO TIRED, AFTHER BEING HOOKED UP TO HIS FEEDING TUB HE WENT TO SLEEP.
SUNDAY HE GOT UP FEELING REALLY GOOD .HE HAS BEEN RUNNING AND PLAYING WITH HIS COUSINS.
YOU WOULDN'T KNOW ANYTHING WAS WRONG WITH HIM . HE GOT UP MONDAY ,AND HES STILL FEELING GREAT , HE STILL PLAYING, RUNNING , AND LAUGHING . GOSH IT SURE IS NICE TO SEE HIM PLAY SO MUCH.

WE EVEN TOOK HIM OUT FOR LUNCH AND HE DID GREAT .IT FEELS SO GOOD TO SEE HIM PLAY. WE WERE EVEN ABLE TO TAKE HIM TO WALMART FOR A TOY . THE GOOD LORD IS WATCHING OVER OUR LITTLE MAN .
HE GOES BACK INTO THE HOSPITAL ON THE EIGHTH FOR HIS BIG CHEMO AGAIN .THEY ONLY PLAN TO KEEP HIM A SHORT STAY, BUT WE WILL STAY IN CHARLESTON TILL HIS COUNTS START UP .
THEY MOVED THE CHEMO UP SO WE CAN BE HOME FOR CHRISTMAS.

AS ALWAYS PLEASE SIGN HIS WEB PAGE AND REMBER TO KEEP TYLER AND HIS FAMILY IN YOUR PRAYERS .I REALLY BELIVE THAT THE PRAYERS HAS GOT US THIS FAR

PS-if you go to the photo album. SANTA IN the pitcure is ashley at christmas party.for happydays LOVE FROM TYLER AND FAMILY

Monday, November 24, 2003 7:55 PM CST

HELLO.
WELL TYLER GOT HIS BIG CHEMO. AND WE HEADED FOR GREENVILLE ON WENSDAY,
HE WAS SICK THROWING UP ALL THE WAY.
HE GOT HOME WAS COMEING IN BACK DOOR AND FELL ON HIS ARM
SO ASHLEY AND GEORGE SIT AT THE ER ALL DAY THURSDAY
HE HAD A BAD SPRING.AND A SOFT CAST WAS PUT ON, EXRAYED AGAIN AT MUSC AND THEY FOUND A SMALL FRACTURE.

HE WAS FEELING BAD THURSDAY AND FRI AND SAT. WE CAME BACK TO CHARLESTON SUNDAY .HE WAS STILL SICK, HE WENT TO THE DR ON MONDAY AND THEY FELT LIKE HE SHOULD BE AMITTED BACK IN MUSC HOSPITAL.
HE HAD RAN A TEM 99.8 THREE DAYS ,SO THERE TESTING TO SEE IF HE HAS A STAFH INFECTION .
LETS ALL PRAY HARD THAT HE DOSNT BECAUSE IF SO THAT MEANS
HE WILL HAVE MORE SURGERY TO REMOVE HIS PORT LINE. AND THAT WILL BE A LONG STAY IN THE HOSPITAL AGAIN .

WE ARE SORRY THAT SOME PEOPLE THAT WANTED TO SEE TYLER DIDNT GET TO , MAYBE NEXT TIME,

GOD HAS BEEN WITH US AND WE NO HE WILL BE THERE TILL THE END .
PLEASE KEEP TYLER AND OUR FAMILY IN YOUR PRAYERS.
ALSO THANKS TO ALL THE WONDERFULL PEOPLE THAT HAS HELP US
PRAYER MONEY AND GIFTS . GOD HAS REALLY BLESSED US . WE HAVE BEEN ABLE TO STAY IN CHARLESTON WITH TYLER .
I THANK GOD THAT THERES PEOPLE THAT CARE IN THE WORLD TODAY . WE COULDNT HAVE DONE IT WITH OUT YOUR HELP.
I FEEL THAT GOD HAS SOMETHING SPECIAL IN MIND FOR TYLER .
AND MAYBE HIS MOM TO .
HES REALLY A STRONG LITTLE GUY ,TEN SURGIERES IN TEN MONTHS
HES STILL GETTING FEED BY FEEDING TUB . HE HASNT TAKEN A BITE OF FOOD IN A WHILE NOW.MONTHS, HE WAS DRINKING A LITTLE BUT HAS NOT SENCE CHEMO.
HES DOING OK WITH THE TRACH OUT BUT CANT SAY A LOT OF WORDS
. HE WILL HAVE TO LEARN TO TALK . BUT HE CAN SAY A FEW WORDS - HE CAN SAY MAMA- PAPA- NANNA- STOP . OUT.

WE MISS ALL OF YOU AT HOME . AND WISH WE COULD BE THERE.
AND HOPE YOU WANT FORGET US .HANG IN THERE WE WILL BE HOME SOMEDAY FOR GOOD WITH TYLER AND ASHLEY .PLEASE HAVE A WONDERFULL THANKSGIVEING, AND REMBER TO THANK GOD FOR KEEPING TYLER HERE WITH US.
LOVE TYLER AND FAMILY

Wednesday, November 12, 2003 7:01 AM CST

HELLO
TYLER AND FAMILY ARE NOW AT THE CAMPER . WE WILL BE HERE UNTIL HE GOES BACK INTO THE HOSPITAL ON THE SEVENTH.
HE IS DOING VERY WELL.HE IS STILL TAKEING A LOT OF MEDICATION AND STILL HAS ALL HIS TUBES .
HES SO STRONG. HE HAS BEEN PLAYING AND RUNNING, BUT HE STILL IS HAVING ALOT OF LEG PAIN. HE STILL WILL NOT EAT ON HIS OWN, AND IS BEING FED TREW HIS J TUBE.
HE IS DOING GOOD WITH THE TRACH OUT ,BUT STILL IS NOT ABLE TO SAY A LOT OF WORDS.HE STILL MANAGES TO GETS THE POINT ACROSS TO YOU WHEN HE WANTS SOMETHING.
WE ARE PRAYING THAT WE WON'T HAVE TO BE IN THE HOSPITAL FOR CHRISTMAS, AND CAN BE IN GREENVILLE WITH OUR FAMILY AND FRIENDS.
TYLER HAS TO BE HOOKED UP TO HIS FEEDS TWENTY HOURS A DAY. THAT DOESN'T LEAVE MUCH TIME TO GO OR DO THE THINGS THAT YOU NEED OR WANT TO DO . PLEASE KEEP PRAYING FOR TYLER AND OUR FAMILY . GOD IS THE REASON THAT HE IS STILL WITH US .

I ALSO WANT TO SAY THANK YOU TO A LOT OF PEOPLE THAT HAS TRIED TO HELP US. TYLER NOW HAS ALL HIS DVDS BACK THAT WERE STOLEN FROM THE HOSPITAL. HE ALSO RECIVED GIFTS OF MONEY THAT WE REALLY NEEDED. THE PEOPLE OF CHARLESTON HAVE BEEN WONDERFULL. ALSO THANK YOU TO A BUNCH OF PEOPLE AT HOME IN GREENVILLE.THANK YOU RONS WORLD AND WIZARDS OF GREENVILLE.
EVEN THOUGH YOU WERE NOT ABLE TO DO THE POKER RUN . THINGS TURNED OUT GOOD . THANK YOU FROM OUR HEARTS . GOD WILL BLESS EACH OF YOU .WE ALSO WANT TO THANK NEW LIFE BAPTIST CHURCH .THEY HAVE SENT FOOD MANY TIMES. THE YARD SALE MONEY HAS KEPT US GOING . THEY ARE STILL DOING ALL THEY CAN DO TO HELP US . GOD HAS WONDERFUL PEOPLE IN THIS WORLD.
LOVE TYLER AND HIS FAMILY

Friday, November 7, 2003 4:52 PM CST

HELLO TO ALL
WELL ITS REALLY BEEN HARD FOR TYLER FOR A WHILE.FRIST OF ALL WHEN HE LEFT THE HOSPITAL LAST WENSDAY
.HE WAS SICK JUST ABOUT ALL THE TIME HE WAS HOME SITTING OVER A THROWUP PAN.
. THEN ON SAT -HE WAS FEELING SOME BETTER AND DONE PERTTY GOOD TILL WENSDAY TYLER STARTED RUNNING A TEMP,102 AND WAS CRYING THAT HIS LITTLE LEGS WAS HURTING.
HE WAS TAKEN TO THE DR AND WAS AMITTED BACK IN MUSC HOSPITAL.AND HAS BEEN THERE SENCE .TYLERS HEART RATE IS REALLY HIGH. AND HIS WHITE BLOOD SELLS ARE ALSO HIGHER THAN THEY SHOULD BE BUT THEY ARE WATCHING THIS AND THINKS IT IS FROM THE STAFH INFECTION.

TYLER HAS A STAFH INFECTION AGAIN THIS IS ABOUT THE FOURTH ONE HE HAS HAD .
SO HE WILL BE IN THE HOSPITAL ABOUT TEN DAYS.

TYLER HAS BEEN DEPRESSED FOR A WHILE NOW . BUT SEEMS TO BE DOING A LITTLE BETTER WITH THAT . HE IS SUSPOSE TO GET BIG CHEMO AGAIN ON THE SEVENTEENTH.
ALL OF YOU PLEASE KEEP PRAYING FOR OUR LITTLE MAN AND OUR FAMILY .PLEASE KEEP VISTING HIS WEB PAGE AND SIGNING IT .

SOME DAYS TYLER HAS REAL GOOD DAYS BUT OTHER DAYS HE REALLY FEELS AND LOOKS REALLY SICK . GOD HAS JUST BEEN WITH US AND I NO HE WILL SEE US THROW THIS NASTY CANCER.

TYLER HAS FEEDING TUBS RUNNING FROM HIS LITTLE BELLY TO FEED HIM . HE IS DOING OK WITH HIS NEW ONE .

ASHLEY IS OK . SHES SUCH A PERFECT MAMA. I SPENT THE NIGHT LAST NIGHT WITH TYLER TO LET HER HAVE A BREAK .

I DONT THINK A LOT OF YOU NO BUT WHEN TYLER WENT TO SURGERY LAST TIME SOME ONE WENT IN HIS ROOM AND STOLE HIS DVDS . BOY WAS ASHLEY AND I UPSET . TYLER AND ASHLEY AND I WERE ON CHANELL 5 NEWS . AND THE WONDERFULL PEOPLE OF CHARLESTON HAVE REPLACED THE DVDS AND MORE TYLER HAS RECIVED SOME GIFTS AND MONEY FROM SOME WONDERFULL PEOPLE IN CHARLESTON. WE GOT FRIENDS WE DIDNT NO WE HAD . BECAUSE NO ONE NEW OF BABY TYLER AND HIS ALLFULL CANCER . GOD IS STILL TAKEING CARE OF US
LOVE TYLER AND HIS FAMILY

Sunday, November 2, 2003 7:00 PM CST

HELLO EVERONE

WE GOT OUT OF THE HOSPITAL ON WENSDAY AFTHER GETTING THE BIG CHEMO.
AND WENT TO GREENVILLE TYLER SLEP ALL THE WAY AND WAS NOT FEELING WELL AT ALL ; HE WAS SICK ALL DAY THURSDAY AND STAYED IN THE BED , HE WASN't FEELING MUCH BETTER ON FRIDAY. HE SLEP MOST THE DAY AND SIT OVER A THROWUP PAN ALL AFTHERNOON.
HIS GRANDMA AND GRANDPA TUCKER AND TYLERS DADDY HAD COME TO SEE HIM AND BRING HIS BIRTHDAY PRESANTS . BUT TYLER FELT TOO BAD.SO THEY WAS GOING TO STOP BACK BY THE NEXT DAY TO SEE IF HE WAS BETTER.
BY SAT HE STILL WASNT FEELING GOOD AND ASHLEY HAD STARTED TO GET WORRIED, WE WAS GOING TO START BACK TO CHARLESTON .
THEN AT NOON SOME OF THE DYNASTYS MOTORCYCLE CLUB MEMBERS CAME TO SEE TYLER ON THER BIKES.
AT FRIST HE WOULDNT PAY THEM MUCH ATTENTION.
BUT AFTHER A WHILE HE WAS FEELING BETTER AND WAS RIDEING HIS FOUR WHEELER .AND PLAYING AROUND A LITTLE . BY THE
TIME THEY GOT READY TO LEAVE TYLER WAS ALL BETTER AND WAS ENJOYING THERE VISIT.
THAT AFTHER NOON TYLER WAS PLAYING THANK THE LORD
HIS GRANDMA AND GRANDPA TUCKER CAME OVER .AND HE PLAYED AND WORE HIM SELF OUT.
THE NEXT DAY SUNDAY TYLER SEEMED TO BE JUST FINE AND
WE HAD LOTS OF VISTORS .
TYLERS AUNT SHELIA AND UNCLE ALLEN CAME OVER. HIS AUNT TAMMY CAME OVER WITH GRANDMA GAIL AND
THEN HIS COUSIN KELLY AND CJ CAME OVER
WE HAD A GREAT DINNER AND REALLY ENJOYED BEING HOME WITH OUR FAMILY AND FRIENDS.
AS YOU ALL NO TYLER HAS A WHILE TO GO WITH HIS TREATMENTS .
PLEASE KEEP HIM AND OUR FAMILY IN YOUR PRAYERS.
GOD HAS REALLY BLESSED OUR FAMILY AND TYLER.
I ALSO WANT TO THANK CAROLINA HIGH SCHOOL
THEY HAD A PENNY DRIVE . AND DID REALLY WELL WITH IT.
THIS MONEY WILL BE USED TO HELP TYLERS FAMILY STAY IN CHARLESTON WITH TYLER ALSO FOR THINGS TYLER AND ASHLEY NEED . THANKS CAROLINA HIGH SCHOOL
WELL KEEP SENDING THOSE PRAYERS UP .

LOVE
TYLER AND FAMILY

Sunday, October 26, 2003 7:01 PM CST

HI EVERONE
I NO I JUST UPDATED I NEEDED TO LET YOU ALL NO THAT
TYLER WANT BE GETTING CHEMO THIS MONDAY .I DONT THINK HE WILL BE COMEING HOME ANY TIME SOON.TYLER HAS REALLY HAD A HARD TIME THIS MONTH.

. HEES BEEN REALLY SICK . HE STILL REMAINS IN THE HOSPITAL. HAD TO HAVE SURGERY ON FRI TO PUT A NEW TUB IN HIS INTESTATES SO THEY COULD FEED
HIM.
THE ONE IN HIS STOMACH IS NOT WORKING.
BUT WAS LEFT THERE FOR HIS MEDICATION.
.
THEY HAD TO CUT A SMALL PLACE ABOUT ONE AND HAFT INCH
IN HIS STOMACH;
HE IS REALLY SORE AND HE DOSNT WANT TO MOVE. HIS STOMACH IS SWOLLEN.

WE PULLED HIM IN THE WAGON BUT HE WAS A SLEEP .ALSO PUSHED HIM IN THE WHEELCHAIR AND HE WENT TO SLEEP . MAYBE HE WILL FEEL BETTER TOMORROW.

TYLER IS NOT TALKING .AND FEELS REALLY BAD.HE HAD SOME TEMP YESTERDAY .BUT NONE TODAY.

THEY TRYED TO FEED HIM BUT HE GOT SICK. BUT DID NOT THROW UP . BUT WAS UNHOOKED FROM HIS FEEDS.THEY WILL TRY AGAIN SOON TO FEED HIM.
TYLER MUST GET OVER THIS BEFORE HE CAN GET HIS CHEMO .
.
TYLERS BREATHING IS NOT RIGHT AND HE IS HAVING TREATMENT FOR THAT .THEY HAVE BEEN PUTTING SMALL TUB IN HIS LITTLE NOSE FOUR TIMES ADAY . TRYING TO SUCTION THE CONGESTION OUT.
POOR LITTLE FELLOW.

I REALLY APERCATE ALL THE PRAYERS AND ALL THAT HAS BEEN DONE TO HELP TYLERS FAMILY STAY WITH TYLER GOD BLESS EACH OF YOU.

I WILL NEVER GIVE UP ON TYLER AND I NO THAT GOD WANT
PLEASE PRAY FOR OUR LITTLE MAN .I DONT NO HOW THIS LITTLE FELLOW HAS BEEN ABLE TO STAND ALL HEES BEEN THROW BUT GOD HAS JUST BEEN WITH HIM AND OUR FAMILY

TYLERS FAMILY

Saturday, October 25, 2003 6:21 AM CDT

HELLO EVERYONE
TYLER HAS BEEN IN THE HOSPITAL ALL MONTH. AND HE IS STILL AT MUSC ROOM 773.
HE HAS BEEN SICK WITH A VIRIS.RUNNING A TEMP WHEN HE FRIST WENT IN.HE HAS ALSO LOST SIX POUNDS.

AND HAS BEEN IN THE OPERATING ROOM TWO TIMES.
THEY TOOK HIS TRACH OUT IN SUGERY AND HE IS DOING GREAT WITH IT. HE STILL NOT SAYING A LOT .BUT THAT WILL COME
. HE ATE A PICKEL. PRAISE THE LORD. THAT IS THE ONLY THING HE HAD EATEN IN OVER TWO MOUTHS .

THEY CAN'T GET HIS FEEDING TUB TO STAY IN . HE HAD TO GO BACK INTO SUGERY AND THEY PUT A NEW ONE UNDER THE OLD ONE .
NOW HE HAS TWO. ONE TO FEED AND ONE FOR MEDS . HE GOT OUT OF SUGERY YESTERDAY WAS IN SOME PAIN . BUT THEY GAVE HIM
PAIN MEDS AND HE WAS SLEEPING THE REST OF THE NIGHT .MAYBE HE WILL BE ABLE TO GET UP TODAY AND FEEL LIKE PLAYING.

TYLER HAS BIG CHEMO COMEING UP MONDAY . LETS ALL PRAY THAT HE DOSNT HAVE TO BE SICK WITH IT .

TYLER HAS A FRIEND HIS NAME IS WALKER .WAKER HAS CANCER .AND NEEDS YOUR PRAYERS .
WALKER COMES TO TYLERS ROOM TO VIST TYLER . PLEASE KEEP TWO YEAR OLD WALKER IN YOUR PRAYS AS WELL .

WE DONT UNDERSTAND WHY TYLER IS GOING THROW THIS BATTEL BUT I NO THAT GOD HAS BEEN WITH US ALL THE WAY .

YOU GET LOMESOME . YOU GET MAD. AND SAD. AND YOU WONDER WHY TYLER . WHY OUR FAMILY. WHY ASHLEY .AND I ALWAYS JUST PRAY AND SOMETHING GOOD HAPPENS .

THE TRACHS OUT . WE HAN'T HAD TO DO WITHOUT AND MOST WONDERFULL THING OF ALL WE HAVE TYLER STILL HERE WITH US .
I THANK GOD EVERYDAY .

PEOPLE HAVE REALLY BEEN GOOD TO US . WE WON'T HAVE GOTTON THIS FAR WITH OUT ALL THE PRAYERS AND THINGS THAT HAVE BEEN DONE TO HELP US STAY HERE WITH ASHLEY AND TYLER. GOD BLESS EACH ONE OF YOU

ONE OF TYLERS WEB FRIENDS.MRS SUSAN PAYTON HAS PASSED AWY WITH CANCER THIS WEEK . SHE WAS A WONDERFULL PERSON . SHE WOULD SEND CARDS WITH SOME TIMES A DOLLAR OR FIVE DOLLAR BILL IN THEM AND MADE A PILLOW FOR TYLER .PLEASE KEEP HER FAMILY IN YOUR PRAYS .SHE WAS LAID TO REST WITH TYLERS PITCURE ON HER HEART . WHAT A WONDERFULL THING FOR HER FAMILY TO DO . GOD BE WITH THEM.


LOVE FROM TYLER AND FAMILY

Friday, October 17, 2003 8:08 AM CDT

HELLO
TYLER HAS SPENT MOST OF THE MONTH IN THE HOSPITAL.
HE HAS HAD TEMP WHEN HE FRIST WENT IN
.
HE HAS HAD TO HAVE.HIS NEW FEEDING TUB PUT IN
THEN HIS BELLY HAD TO GET USE TO IT BECAUSE HE WAS THROWING
UP.
HIS COUNTS WERE DOWN SO HE WAS FEELING REALLY BAD FOR A FEW DAYS.
HAD SOME XRAYS OF HIS LUNGS DONE.

HAD TO GIVE HIM SOME BLOOD.SO THEN HE HAD TO HAVE WHAT THEY CALL HIS BANK ;THIS IS MEDICATION THAT IS GIVEN EVER SIX HRS. THE BANK WILL FINSH TODAY. AND WE THINK HE WILL GET TO COME HOME A FEW DAY PRAISE THE LORD.

IF ALL GOES WELL WE WILL GET TO BRING HIM TO GREENVILLE
FOR A FEW DAYS BEFORE HE HAS TO BE REAMITTED FOR BIG CHEMO ON THE TWENTY;SEVENTH.

ALL THOSE PRAYERS ARE WORKING
GOD HAS BEEN SO GOOD TO US AND I NEVER FORGET TO THANK HIM EVER DAY.
OUR LITTLE MAN IS STILL WITH US AND THAT IS THE BIGEST BLESSING WE COULD EVER HAVE.THE GOOD LORD HAS HAS BLESSED US IN SO MANY WAYS.
WITH OUT GOD TYLER. AND OUR FAMILY WOULD NOT HAVE GOTTON THIS FAR .STILL A WHILE TO GO SO PLEASE KEEP OUR FAMILY IN YOUR PRAYERS I NO IN MY HEART THAT GOD WILL SEE US THROW THIS . THAT OUR LITTLE MAN WILL SOME DAY BE WELL AND AT HOME .WITH ALL THIS HORRABLE STUFF BEHIND US. CANCER IS NASTY . IT IS ONE OF THE WORST THINGS A FAMILY COULD EVER GO THROW.
ITS BEEN HARD ON THE FAMILY . BUT FOR ASHLEY ITS BEEN HORRIABLE . TO WATCH HER BABY SUFFER THE WAY HE HAS . BUT LET ME TELL YOU ALL SHES THE PERFECT MOM . SHES A SPECIAL MOM ONE THAT GOD CREATED JUST FOR TYLER.SHES SO GOOD WITH HIM.
.
WELL HOPE TO SEE SOME OF YOU IN GREENVILLE NEXT WEEK .
WE LOVE ALL YOU AND APERCATE ALL THE SIGNING OF THE WEB PAGE AND ALL THE CARDS THAT WAS SENT FOR TYLERS AND DARLENES BIRTHDAY.MAY GOD BLESS EACH OF YOU.

ONCE AGAIN I THANK ALL OF YOU FOR ALL THAT HAS BEEN DONE TO HELP TYLERS FAMILY BE ABLE TO STAY IN CHARLESTON WITH TYLER .
10-20-03- UP DATE
tyler remains in the hospital dont no when he will get out
TYLERS FAMILY

Sunday, October 12, 2003 7:45 PM CDT

HI
TYLERS IS STILL IN THE HOSPITAL.TYLER HAS ANOTHER STAPH INFECTION .

HE HAS BEEN IN MUSC SENCE THE 7TH, HAS BEEN REALLY FEELING BAD,FOR A FEW DAYS HIS COUNTS ARE DOWN BUT ARE ON THE WAY
BACK UP NOW SO HE WILL START TO FEEL BETTER SOON
,HE MAY EVEN BE ABLE TO GO TO THE CAMPER ON TUESDAY FOR A FEW DAYS .
BEFORE HE HAS TO BE AMITTED AGAIN ON THE 27TH FOR BIG CHEMO .

HE HAS TO HAVE A NEW FEEDING TUB PUT BACK IN BECAUSE HES STILL THROWING UP WITH THIS ONE . WE WILL SEE HOW THAT GOES . GOD WILLING HE WILL DO GOOD WITH THIS ONE. THIS WILL BE ABOUT THE FOURTH ONE .

TYLER HAD A WONDERFULL BIRTHDAY HE HAD A PARTY AT THE HOSPITAL , WITH THE NURES AND DRS ,AND A FRIEND FROM HAPPY DAYS, THERE WAS PIZZA, AND BIRTHDAY CAKE COKE. AND PLEANTY OF GIFTS.
BUT TYLER WAS NOT UP TO A PARTY MUCH . SO HE WENT BACK TO BED.
THERE WAS PITCURES TAKEN AND WILL BE POSTED ON WEB PAGE NEXT WEEK .

THEY DIDNT TAKE HIS TRACH OUT HE WAS TO SICK TO HAVE TO GO THROW THAT .
SO THE DRS SEEM TO THINK IT WOULD BE BETTER TO WAIT A LITTLE LONGER .
LETS ALL PRAY THAT HE WILL GET THIS DONE SOON
ANY ONE THAT IS IN CHARLESTON WHEN TYLER IS IN THE HOSPITAL OR AT THE CAMPER IS MORE THAN WELCOME TO STOP BY AND VIST US AND MORE THAN WELCOME TO COME VISIT OUR HOME IN GREENVILL . BUT WE ARE NOT AT HOME A LOT.

NEW LIFE BAT CHURCH HAD A YARD SALE TO HELP TYLERS FAMILY BE ABLE TO STAY IN CHARLESTON WITH HIM . AND WE WANT TO THANK THEM . FOR ALL THERE HARD WORK . AND FOR ALL THE PRAYERS FOR TYLER AND OUR FAMILY.THESE ARE WONDERFULL PEOPLE THAT LOVE GOD AND SHOW IT EVER DAY,
GOD HAS BEEN SO GOOD TO US , HE HAS MADE A WAY
AND HE HAS LET US KEEP OUR LITTLE MAN HERE WITH US .

PLEAE KEEP THOSE PRAYERS COMEING AND KEEP SIGNING THE WEB PAGE, TYLER STILL HAS A LOT OF CHEMO TREATMENTS. IF ALL GOES WELL THE CHEMO WILL END IN MARCH.

LOVE FROM TYLERS FAMILY

10-18-03
tyler didnt get to come to the camper. hes still in the hospital .had chemo today.

Wednesday, October 8, 2003 7:39 AM CDT

WELL HELLO EVERYONE
TYLER WAS AMITTED ON THE 2ND FOR HIS BIG CHEMO .ON THE 3RD
HE WAS TAKEN TO THE OPERATION ROOM AND HAD HIS PORT PUT BACK IN HE HAS DONE REAL WELL WITH THE PORT LINE
HE DID WELL AND GOT TO COME TO THE CAMPER ON FRI. PLAYED ALL DAY SAT

SUNDAY HE STARTED CRYING SAYING THAT HIS FEEDING TUB HURT WAS TAKEN TO THE ER.AT TWELVE THAT NIGHT ,HAD XRAYS . EVERTHING SEEMED TO BE OK.
SO HE GOT TO COME BACK TO THE CAMPER

ON MONDAY TYLER .ASHLEY AND PAPA /NANNY ALL WENT TO WALMART FOR NANNYS BIRTHDAY AND GOT TOYS FOR TYLER AND THEN TYLER TOOK NANNY OUT TO LUNCH HAD A WONDERFULL TIME TOGEATHER.

GOT UP ON TUES TYLER HAD A TEMP 102.TOOK HIM TO THE DRS SPENT THE DAY THERE. BUT HIS COUNTS WERE GOOD AND HADNT BOTTOMED OUT YET SO HE WAS ABLE TO COME BACK TO CAMPER.HE PLAYED A LITTLE BUT WASN'T FEELING GOOD.
AT TWO IN THE MORNING ASHLEY WOKE ME TOLD ME THAT SHE HAD CALLED THE DRS THAT TYLER HAD A TEMP 102 AGAIN.THAT NASTY CHEMO WAS REALLY MAKEING HIM SICK.
HE WAS TAKEN TO MUSC HOSPITAL AND WAS AMITTED.
TYLER WILL BE SPENDING HIS 3RD BIRTHDAY AT THE HOSPITAL.

WE ARE GOING TO TRY TO HAVE A SMALL BIRTHDAY PARTY FOR HIM .
MAYBE WITH THE NURSES .
TYLER IS IN ROOM 770 MUSC HOSPITAL OF CHARLESTON.

ALSO THANK YOU ALL FOR YOUR SUPORT AND ALL THE CARDS AND THE GIFTS THAT TYLER HAS GOTTON IN THE MAIL. HE REALLY HAS ENJOYED THEM.AND THANKS FOR READING THE UPDATES AND SIGNING THE WEB PAGE .IT LETS US NO THAT WE ARE MISSED AND THAT YOU ARE STILL THINKING OF US.
GOD BLESS EACH OF YOU .GOD IS WITH US AS WE GET THREW THE REST OF THIS CANCER TREATMENTS AND ALL THE HORRIABLE THINGS THAT COME WITH IT.

TYLER AND FAMILY

Tuesday, October 7, 2003 7:54 PM CDT

Tuesday, September 30, 2003 8:18 AM CDT

HELLO . NEW UP DATE ON TYLER
WELL WE MADE IT TO GREENVILLE ON THURSDAY .
TYLER WAS FEELING GREAT, BUT HE WENT TO SLEEP FRI NIGHT AND
HIS PIC LINE CAME OUT OF HIS ARM . ASHLEY WAS AT THE ER ALL DAY ON SAT.
ASHLEY CAN'T GIVE HIM HIS TPN WITHOUT THE LINE.THIS IS ONE OF THE THINGS THAT FEEDS HIM. SO HIS DRS WERE CALLED ANDTHEY SAID THAT IT WOULD BE BEST IF WE RETURNED TO CHARLESTON WITH TYLER

TYLER HAS BEEN PLAYING THIS WEEK AND HAS REALLY FELT GOOD
WE WENT TO WAL MART YESTERDAY AND HE WANTED POPCORN CHICKEN . HE ATE THREE PICES OF IT . TYLER HASNT EATEN ANYTHING BY MOUTH IN A COUPLE OF MOUNTHS. IT SURE FELT GOOD TO SEE HIM TAKE A FEW BITES.
TYLER REALLY REALLY LOOKS GOOD AND IS DOING GOOD RIGHT NOW.

HE GOES BACK IN THE HOSPITAL TOMORROW THEY WILL PUT HIS
PORT A CATH BACK IN ,AND HE WILL GET HIS BIG CHEMO.
LETS ALL KEEP PRAYING FOR TYLER .GOD HAS WORKED MIRACLES.
WE ALSO WANT TO THANK REV RONNIE POWELL,
MR JERRY WINCHESTER, AND MEMBERS OF NEWLIFE BAPTIST CHURCH
FOR THE FOOD AND THE MONEY. THIS HAS HELPED US BE ABLE TO STAY IN CHARLESTON WITH TYLER .
WHAT A WONDERFULL CAREING GROUP OF PEOPLE . GOD BLESS EACH OF YOU.
TYLER HAS A BIRTHDAY ON OCT 9- HE WILL BE THREE YEARS OLD
HE HAS SPENT OVER HALF HIS LIFE HERE IN CHALESTON AND AT MUSC HOSPITAL. WE PRAY THAT WE WILL GET TO COME HOME SOON TO STAY ,BUT THE DRS SAYS THE TREATMENT WILL LAST TILL MARCH .
SO WE HAVE A LONG WAYS TO GO YET . WE WILL MAKE IT GOD HAS ALREADY BEEN SO GOOD TO US . WE STILL HAVE
TYLER

LOVE FROM TYLERS FAMILY

Our address here
LAKE AIR RV PARK
4375 HIGHWAY 162
HOLLYWOOD S.C
29449

Thursday, September 25, 2003 7:34 AM CDT

HELLO
TYLER IS OUT OF HOSPITAL . HE IS DOING SOME BETTER.
HE IS STILL THROWING UP .HE HAD EXRAYS ON TUSDAY.
WE WERE TOLD THAT A MUSSELL IN HIS STOMAC HAD STOPED WORKING AND THAT THIS MAY BE THE CAUSE OF THE THROWING UP. THE DRS DESICED TO TREAT WITH MEDICAN . SUGERY WOULD BE THE LAST RESORT.

TYLER THEN HAD A SCOPE DONE YESTERDAY . AND EVERTHING LOOKED GOOD.PRAISE THE LORD

TYLER IS AT THE HOSPITAL THIS MORNING TO DO SCANS . LETS ALL PRAY THAT THERES NO SIGN OF THE CANCER.THAT THE CHEMO IS DOING ITS JOB.

THERES A CHANGE THAT WE MAY GET TO BRING TYLER HOME FOR A FEW DAYS.

THEY ARE STILL FEEDING HIM THREW A PIC LINE. THAT WILL BE REMOVED NEXT WEEK.HE WILL RETURN TO MUSC HOSPITAL FOR BIG CHEMO ON THE FRIST/HIS PICK LINE WILL COME OUT AND NEW CHEMO LINE PUT IN.
TYLER STILL HASNT EATEN IN OVER TWO MONTHS .HE WILL TAKE A SIP OF COKE.
HE STILL HAS HIS FEEDING TUB IN HIS STOMAC .THEY WILL BE FEEDING HIM SMALL AMOUNTS THIS WAY .
HE ALSO STILL HAS THE TRACH. STILL DOING OK WITH THAT

EVEN AT TIMES HE WILL RUN . AND PLAY AND HAS A GREAT BIG SMILE.
HE IS HOLDING HIS HEAD TO ONE SIDE AND WALKING ON TIP TOES BUT THAT IS FROM HIS MEDICATION AND WILL GO AWAY

TYLERS FAMILY IS ALSO DOING OK. AND THANK GOD EACH DAY FOR TYLER BEING WITH THEM . HEES SUCH A STRONG, SPECIAL LITTLE BOY.
WE PRAY THAT TYLER WILL ONE DAY BE RID OF THIS ALLFULL CANCER ,AND ALL THE MISRABLE THINGS WITH IT . THAT GOD WILL HEAL HIM. AND THAT HE WANT HAVE THE PAIN AND SICKNESS THAT THIS BRINGS WITH IT.THAT GOD WILL HELP HIS FAMILY.
GIDE THEM THEW. ALL THE HARD TIMES.AND KEEP THEM STRONG .

ALSO WANT TO THANK GRANDMA GAIL FOR ALL THE THINGS SHE HAS TRYED TO DO TO HELP HER FAMILY. ALL THE TRIPS SHES HAD TO MAKE TO CHARLESTON .SO THE ONES HERE COULD HAVE A BREAK. SHES A SPECIAL GRANDMA. AND LOVES ASHLEY AND TYLER SO VERY MUCH AND PROVES IT EACH DAY, WE THANK GOD FOR HER.
YOU ALL PLEASE KEEP PRAYING FOR TYLER AND SIGNING HIS WEB
PAGE . IT REALLY HELPS TO NO SO MANY PEOPLE CARE AND RETURN
TO TYLERS PAGE TO SEE HOW HE AND HIS FAMILY ARE DOING
GOD BLESS EACH ONE OF YOU
LOVE FROM TYLER,
FAMILY

Friday, September 19, 2003 7:38 AM CDT

HELLO EVERYONE
TYLERS STILL AT THE CAMPER .BUT HAS BEEN SICK
HE HAS BEEN TAKEN TO THE DR THIS WEEK.
HE HAS BEEN RUNNING SOME TEMP . AND REALLY FEELING BAD,
HES BEEN THROWING UP A LOT. WERE CHANGING HIS BED AT LEAST A COUPLE TIMES A NIGHT BECAUSE OF THROWING UP.WE ARE PRAYING THAT NOTHING IS WRONG WITH
THAT FEEDING TUB AGAIN.
HE HASNT BEEN ABLE TO PLAY THIS WEEK A LOT, HE JUST DOSN'T FEEL LIKE IT.
TYLER HAS BEEN HOLDING HIS HEAD TO ONE SIDE AND WALKING ON HIS TIPTOES. THIS IS FROM HIS MEDICATION WE THINK.

HIS COUNTS HAVE DROPpED DOWN AND HAVE STARTED BACK UP NOW
SO MAYBE HE WILL START FEELING A LITTLE BETTER.

HE HAS TO GO BACK TO THE DR TODAY SO THEY CAN RE CHECK HIM.
HE GOES BACK INTO THE HOSPITAL ON THE FRIST FOR HIS BIG CHEMO AGAIN.WHILE HEES THERE THEY WILL PUT HIS CHEMO LINE BACK IN . THIS WILL HAVE TO BE IN THE OPERATING ROOM . BUT IT IS SOMETHING THAT IS DONE ALL THE TIME.

TYLERS GOING TO BE THREE YEARS OLD OCT -9- HE WILL HAVE TO SPEND HIS BRITHDAY HERE AT THE CAMPER IF HEES OUT OF THE HOSPITAL . HIS COUNTS WILL BE DROPPING AND HE WILL HAVE TO
BE CLOSE TO THE HOSPITAL.UNLESS FOR SOME REASON THEY HAVE TO NOT GIVE HIM CHEMO THAT WEEK.LETS PRAY THAT HE GETS HIS CHEMO.
PLEASE KEEP TYLER AND HIS FAMILY IN YOUR PRAYERS.
WE HAVE BEEN HERE A WHILE NOW .AND GETTING HOME SICK

BUT GOD WILL SEE US THROW ALL OF THIS.ONCE AGAIN THANKS TO EVERYONE FOR THE PRAYERS AND ALL THE SUPpORT THAT WE HAVE BEEN GETTING .WE LOVE ALL OF you
ps,update/tyler was amitted to musc
today.
TYLER. ASHLEY. DARLENE/GEORGE

Monday, September 15, 2003 5:27 PM CDT

HELLO EVERYONE
TYLER WENT TO THE DR TODAY, AND HIS COUNTS ARE DROPPING
NOW. HE HAS TO STAY IN CHARLESTON CLOSE TO THE HOSPITAL.
SO WE ARE GOING TO BE HERE FOR A COUPLE OF WEEKS BEFORE WE GET TO GO HOME FOR A VISIT.
HE HAS THE PIC LINE STILL IN HIS ARM .WE HAVE TO BE CAREFULL WITH IT.
HE IS ALSO NOT TOLERATING HIS FEEDS WELL.
HE GETS A GCSF SHOT AT NIGHT WHILE HIS COUNTS ARE DOWN.
HE IS STILL BEING FEED THROW HIS PIC LINE,AND IS DOING OK WITH THAT.
HE HAS A LOT OF LEG PAIN AND CRYS AND WANTS ASHLEY TO RUB THEM FOR HIM.
THEY PLAN ON TRYING TO GET HIS TRACH OUT SOME TIME IN OCTOBER.
HE WILL BE ADMITTED ON THE TWENTY NINTH FOR BIG CHEMO UNLESS HE HAS TO GO BACK IN WITH A TEMP SOONER .THEY WILL PUT HIS PORT BACK IN WHILE HE IS IN THE HOSPITAL.
HE HAS BEEN AT THE CAMPER THIS WEEK AND HAS BEEN ABLE TO PLAY .PLEASE EVERONE KEEP PRAYING FOR TYLER HES STILL GOT A LONG WAY TO GO THIS IS ONE STRONG LITTLE FELLOW. SOME PEOPLE HAVE BEEN ASKING WHAT KIND OF CANCER HE HAS IT IS RHABDOMYOSARCOMA WHICH HAS TWO SUBTYPES HIS IS THE AVEOLAR.

LOVE
TYLER AND FAMILY

Tuesday, September 9, 2003 6:36 PM CDT

WELL HELLO EVERYONE
SHORT UP DATE ON TYLER
HE WAS IN THE HOSPITAL ELEVEN DAYS THIS TIME. HES DOING OK WITH HIS TEMPORARY PIC LINE.HE WILL HAVE IT FOR THREE WEEKS
THEN THEY WILL TAKE HIM IN OPERATING ROOM AND PUT HIS PORTOCATh BACKIN
.THIS WILL TAKE PLACE WHEN HE GETS NEXT BIG CHEMO .ALL THE STAPH INFECTION IS GONE THEY THINK .
HOPE IT STAYS GONE TYLER HAD HIS BIG CHEMO YESTERDAY AND HE IS DOING OK SO FAR WITH THAT
WE WILL HAVE TO STAY IN CHARLESTON HE NEEDS TO BE CLOSE TO THE HOSPITAL.
LETS ALL PRAY HE DOSNT GET A TEMP AND HAVE TO GO BACK.WE THANK GOD EACH DAY THAT WE STILL HAVE TYLER WITH US .AND THAT OUR FAMILY HAS BEEN ABLE TO BE HERE
WITH HIM .
HE STILL GETTING FEED WITH HIS FEEDING TUB .HE WILL NOT EAT
HE ALSO WILL BE GETTING A GCSF SHOT FOR TEN DAYS.
ALSO WE WANT TO THANK ALL THE PEOPLE THAT HAS BEEN HELPING US. THE WIZADRD NIGHT CLUB GAVE SOME MONEY TO THE FAMILY.
TO HELP THEM BE ABLE TO STAY IN CHARLESTON WITH TYLER.WE REALLY APERCATE IT. WE HAVE SEVEN TO EIGHT MORE MONTHS TO JUST FINSH HIS TREATMENT ,
THIS WILL HELP US .ONCE AGAIN
THANK YOU
TYLERS FAMILY

Saturday, September 6, 2003 7:35 AM CDT

HELLO EVERYONE
TYLERS STILL IN THE HOSPITAL. HE IS DOING OK. HES BEEN RUNNING AND PLAYING . MAKEING EVERYONE LAUGHT. HES SUCH A
HAPPY LITTLE BOY. AND LOVES EVERYONE AT MUSC THEY ARE SO GOOD TO HIM.SPOILED HIM ROTTEN.HE GETS TO PLAY IN THE ATRIUM
WITH ALL THE GREAT TOYS .
THEY DID TAKE HIM IN TO SUGERY YESTERDAY
TO GET THE TEETH FIXED UP . BUT THE INFECTION WAS NOT AS BAD AS THEY WERE THINKING IT WAS GOING TO BE. THEY DIDNT END UP PULLING THEM. THANK GOODNESS HE ONLY HAS A FEW LEFT' BUT THAT MEANT THAT THE STAPH INFECTION WAS COMEING FROM SOMEWHERE ELES. THEY DID HAVE TO PULL HIS CHEMO LINE OUT.
THEN THE DRS TRIED TO GET ONE IN HIS HIS NECK BUT IT WOULNT GO . NOW THEY WILL HAVE TO DESIDE WHAT TO DO ON MONDAY . THIS LINE IS WHERE THAT PUT HIS KEMO AND PART OF HIS FEEDS. AND HE HAS TO HAVE ONE

THE DYNSTY BIKER CLUB .HAS PUT SOME MONEY IN THE BANK TO HELP OUR FAMILY STAY IN CHARLESTON WITH TYLER. SO WE WANT TO SAY THANK YOU TO THEM . A SUPER BUNCH OF GUYS. ALSO TO HAPPY DAYS WHO HAS SENT US STEAK AND PIZZA TO THE HOSPITAL.
EVERYONE HAS BEEN SO GOOD TO US AND GOD HAS BLESSED US.
I KEEP MY TRUST IN GOD.

TYLER STILL HAS HIS BELLY TUB AND CAN GET SOME FEEDS THAT WAY . HE STILL WANT EAT ANYTHING.TYLER WILL GET HIS FOOD AND LOOK AT IT BUT WILL NOT PUT IT IN HIS MOUTH.HIS MEALS ARE SENT HOPING HE WILL TAKE A FEW BITES. HE DOSE DRINK DR PEPPER.
HE ALSO STILL GOT THE TRACH. BUT HOPING TO GET RIDE OF THAT THING IN OCTOBER. KEEP PRAYING FOR TYLER AND GOING TO AND SIGNING HIS WEB PAGE. MUSC NOW HAS ECARDS FOR KIDS SO YOU CAN SEND A CARD ITS WWW.MUSCKIDS.COM


LOVE TYLER ASHLEY
GEORGE AND DARLENE

Saturday, September 6, 2003 7:35 AM CDT

HELLO EVERYONE
TYLERS STILL IN THE HOSPITAL. HE IS DOING OK. HES BEEN RUNNING AND PLAYING . MAKEING EVERYONE LAUGHT. HES SUCH A
HAPPY LITTLE BOY
THEY DID TAKE HIM IN TO SUGERY YESTERDAY
TO GET THE TEETH FIXED UP . BUT THE INFECTION WAS NOT AS BAD AS THEY WERE THINKING IT WAS GOING TO BE. THEY DIDNT END UP PULLING THEM. THANK GOODNESS HE ONLY HAS A FEW LEFT' BUT THAT MEANT THAT THE STAPH INFECTION WAS COMEING FROM SOMEWHERE ELES. THEY HAD TO PULL HIS CHEMO LINE OUT.
THEN THE DRS TRYED TO GET ONE IN HIS HIS NECK BUT IT WOULNT GO . NOW THEY WILL HAVE TO DESIDE WHAT TO DO ON MONDAY . THIS LINE IS WHERE THAT PUT HIS KEMO AND PART OF HIS FEEDS. AND HE HAS TO HAVE ONE

THE DYNSTY BIKER CLUB .HAS PUT SOME MONEY IN THE BANK TO HELP OUR FAMILY STAY IN CHARLESTON WITH TYLER. SO WE WANT TO SAY THANK YOU TO THEM . A SUPER BUNCH OF GUYS. ALSO TO HAPPY DAYS WHO HAS SENT US STEAK AND PIZZA TO THE HOSPITAL.
EVERYONE HAS BEEN SO GOOD TO US AND GOD HAS BLESSED US.
I KEEP MY TRUST IN GOD.

TYLER STILL HAS HIS BELLY TUB AND CAN GET SOME FEEDS THAT WAY . HE STILL WANT EAT ANYTHING.TYLER WILL GET HIS FOOD AND LOOK AT IT BUT WILL NOT PUT IT IN HIS MOUTH.HIS MEALS ARE SENT HOPING HE WILL TAKE A FEW BITES. HE DOSE DRINK DR PEPPER.
HE ALSO STILL GOT THE TRACH. BUT HOPING TO GET RIDE OF THAT THING IN OCTOBER. KEEP PRAYING FOR TYLER AND GOING TO AND SIGNING HIS WEB PAGE. LOVE ASHLEY TYLER
GEORGE AND DARLENE

Sunday, August 31, 2003 5:30 PM CDT

HELLO
WE TOOK TYLER HOME TUESDAY/WE WERE THERE WENSDAY/ THURSDAY / HE DID REAL WELL WAS RUNNING AND PLAYING SMILEING LAUGHTING/HAVEING A WONDERFULL TIME TILL
FRIDAY HE STARTED RUNNING A TEMP. WAS TAKEN TO GREENVILLE ER THERE THEY GAVE HIM IV,S BLOOD WORK AND SENT HIM HOME AFTHER CALLING THE DRS AT MUSC.
TYLER STILL WAS RUNNING A TEMP OF 101 ON SAT SO HE WAS TAKEN BACK TO ER IN GREENVILLE HIS DRS WAS CALLED AGAIN AND THEY DID SOME BLOOD WORK THAT SHOWED THAT TYLER HAD SOME INFECTION.WE WERE TOLD TO BRING HIM BACK TO MUSC. THAT
THEY WANTED TO ADMITT HIM.
I JUST TALK TO ASHLEY AND SHE SAID THAT THEY SAID HE HAS A STAFF INFECTION.
HE IS SUSPOSE TO GET BIG CHEMO ON TUESDAY .IF THIS DOSE NOT DELAY IT.
HE STILL HAS FEEDING TUB AND HE STILL HAS TRACH. /
HE HAS SOME BLACK SPOTS THAT IS IN HIS JAW AROUND A FEW TEETH THAT THEY LEFT.
KEEP PRAYING FOR TYLER AND OUR FAMILY AND PLEASE KEEP SIGNING HIS WEB PAGE.AND THE PEOPLE THAT HAS PUT MONEY IN TYLERS ACCOUNT SO WE CAN STAY HERE. THANK YOU . AND GOD WILL BLESS YOU WE REALLY WERE NEEDING IT THANKS
LOVE TYLER AND FAMILY

Monday, August 25, 2003 7:11 AM CDT

GOOD NEWS
TYLER HAS BEEN AT THE CAMPER .HE SEEMS TO BE DOING A LOT BETTER, AND HE LOOKS ALOT BETTER .WE DID GO TO THE ER YESTERDAY WITH HIM . HE WAS BLEEDING FROM HIS FEEDING TUBE.
THEY SAID IT JUST NEEDS CARARISE . THAT WILL BE DONE TODAY WHEN HE SEES HIS DRS.
HE STILL WONT EAT OR PLAY MUCH AT ALL.
HE SEEMS TO GET TIRED REAL EASY.WITH ALL HES BEEN THROW THIS IS EXPECTED.
TYLER STILL HAS A LONG WAY TO GO WITH THE CHEMO
AND TRYING TO GET THE TRACH OUT . THE FRIST TRY ON GETTING
THE TRACH OUT WILL BE IN OCT, BUT SOMETIMES IT TAKES A FEW TRYS.
TYLER GOES BACK INTO THE HOSPITAL NEXT MONDAY FOR HIS BIG CHEMO.LETS KEEP PRAYING THAT HE DOSE WELL WITH IT AND DOSNT GET SICK.
ALL OF YOU KNOW THAT GOD HAS ANSWERED A LOT OF PRAYERS FOR THIS LITTLE GUY.HE HAS DONE SO MUCH FOR TYLER AND OUR FAMILY , AND I THANK HIM EACH DAY.
HES GAVE ASHLEY THE STRENTH SHE NEEDS TO BE ABLE TO HANDLE ALL THIS. PRAISE THE LOARD.
WE ARE HOPING TO BE HOME BY THE WEEKEND.
TYLERS FAMILY

Thursday, August 21, 2003 12:51 AM CDT

HELLO
TYLER WAS IN THE HOSPITAL FOR THE PASS FOUR DAYS . HE WENT IN WITH A TEM / AND COUGH. HE REALLY BEEN FEELING BAD FOR A WHILE NOW. HE IS NOW BEING FEED IN HIS VEINS AND HIS FEEDING TUB. BUT THE VEINS WILL ONLY BE ABOUT FOUR TO SIX WEEKS. HE WAS LOOSING WEIGHT.THEY ALL SO FOUND A SMALL SPOT IN HIS LEFT LUNG . BUT WILL HAVE TO DO MORE EXRAYS TO NO IF ITS FROM HIS COLD OR SOMETHING ELES.
HE GOT OUT YESTERDAY . BUT STILL NOT DOING TO WELL. HE GOT UP THIS MORNING AND HIS JAW WAS REALLY SWALLEN/ HES GONE NOW TO SEE THE DR. HES COUNTS ARE DOWN NOW . LETS ALL PRAY THAT HELL BE FEELING MUCH BETTER WHEN HIS COUNTS GET BACK UP .HE IS TAKING A SHOT EACH NIGHT TO HELP WITH THAT.
THEY SENT A NURSE OUT TO SEE ABOUT TYLER YESTERDAY WHEN HE GOT HOME . AND SHE WILL COME A FEW DAYS IF WE WANT HER TO YO MAKE SURE HES OK.
ASHLEY GEORGE AND I MISS YOU ALL AT HOME . BUT THIS HAS TO COME FRIST , WE WILL BE BACK TO GREENVILLE SOON AS TYLERS ALL BETTER . JUST REMBER US ALL IN PRAYER .PLEASE KEEP SIGNING THE WEB PAGE . LOVE TYLERS FAMILY

Thursday, August 21, 2003 12:51 AM CDT

HELLO
TYLER WAS IN THE HOSPITAL FOR THE PASS FOUR DAYS . HE WENT IN WITH A TEM / AND COUGH. HE REALLY BEEN FEELING BAD FOR A WHILE NOW. HE IS NOW BEING FEED IN HIS VEINS AND HIS FEEDING TUB. BUT THE VEINS WILL ONLY BE ABOUT FOUR TO SIX WEEKS. HE WAS LOOSING WEIGHT.THEY ALL SO FOUND A SMALL SPOT IN HIS LEFT LUNG . BUT WILL HAVE TO DO MORE EXRAYS TO NO IF ITS FROM HIS COLD OR SOMETHING ELES.
HE GOT OUT YESTERDAY . BUT STILL NOT DOING TO WELL. HE GOT UP THIS MORNING AND HIS JAW WAS REALLY SWALLEN/ HES GONE NOW TO SEE THE DR. HES COUNTS ARE DOWN NOW . LETS ALL PRAY THAT HELL BE FEELING MUCH BETTER WHEN HIS COUNTS GET BACK UP .HE IS TAKING A SHOT EACH NIGHT TO HELP WITH THAT.
THEY SENT A NURSE OUT TO SEE ABOUT TYLER YESTERDAY WHEN HE GOT HOME . AND SHE WILL COME A FEW DAYS IF WE WANT HER TO YO MAKE SURE HES OK.
ASHLEY GEORGE AND I MISS YOU ALL AT HOME . BUT THIS HAS TO COME FRIST , WE WILL BE BACK TO GREENVILLE SOON AS TYLERS ALL BETTER . JUST REMBER US ALL IN PRAYER .PLEASE KEEP SIGNING THE WEB PAGE . LOVE TYLERS FAMILY

Monday, August 18, 2003 7:27 AM CDT

TYLERS BACK IN THE HOSPITAL AT MUSC.
HE HAS BEEN SICK .AND WANT EAT.HE JUST SIT ALL WEEK .WOULD NOT WALK OR PLAY.
HE HAS BEEN THROWING UP . HE ALSO HAS LOST A LITTLE MORE WEIGHT.
HE HAS BEEN RUNNING A TEMP. AND REALLY WAS FEELING BAD.
ASHLEY THINKS HE MAY HAVE HAVE A BAD COLD.OR A PLUG . THAT MIGHT BE MAKEING HIM THROW UP. THERES NO WAY TO TELL
WITHOUT EXRAYS. THERES BEEN PITCURES
ON A NEW LINK .JUST GO TO THE BOTTOM
OF PAGE BUT THAT IS ALL. THE REST IS
NOT FINSHED YOU HAVE TO SIGN .THE SAME
WAY YOU ALWAYS DO . BUT MAY CLICK ON
LINK AND SEE ALL TYLERS PITCURES
DRS SAID TODAY THAT TYLER WILL HAVE TO BE FEED IN HIS VEINS. HE WILL STILL GET SOME IN HIS FEEDING TUB BUT ONLY A SMALL AMOUNT .THE REST WILL BE IN HIS VEINS. THEY SAID THAT HIS COUNTS HAVE JUST STARTED DROPING FROM HIS BIG CHEMO.
AND THEY HELT OFF AND DID NOT GIVE CHEMO TODAY . BUT MAY GET IT TOMORROW.
LOVE TYLER AND FAMILY
. ASHLEY IS OK .PLEASE KEEP HIM IN YOUR PRAYERS. IAM GOING TO THE HOSPITAL AND WILL ADD MORE TO THIS PAGE TONIGHT OR TOMORROW . PLEASE SIGN THE WEB PAGE .ASHLEY AND I READ EVERY BIT OF IT .IT SURE HELPS TO NO SO MANY PEOPLE CARE

Friday, August 15, 2003 7:55 AM CDT

TYLER HAS FINSHED THE RADIATION .THAT PART OF THE TREATMENT
IS OVER .THANK GOD. HE REALLY HAS SOME BAD BLISTERS YET
.HOPING THIS WILL GET WELL SOON. HE WAS IN THE HOSPITAL THIS WEEK WITH BIG CHEMO . SO FAR HE;S DOING OK WITH THAT.
ALSO STILL HAS FEEDING TUBE . AND IS OK WITH THAT

WE ARE IN GREENVILLE FOR THE WEEKEND . AND REALLY HAPPY TO BE HOME A FEW DAYS.
IN A BOUT FIVE OR SIX WEEKS TYLER WILL GO TO SUGERY TO GET HIS TRACH TAKEN OUT BUT THEY DONT NO HOW WELL HE WILL DO WITH THIS SO THE PLAN IS TO PUT HIM TO SLEEP TAKE IT OUT AND LET HIM WAKE UP SEE IF HE CAN BREATH OK IF NOT THEY WILL PUT IT BACK AND WAIT FOR TWO MORE MONTHS TRY AGAIN, MOST LIKLEY THEY WILL HAVE TO PUT IT BACK THE DR SAID
WE CAN PRAY THAT IT WANT TAKE BUT ONE TIME.
YOU ALL PLEASE KEEP PRAYING FOR TYLER AND ASHLEY . AND OUR FAMILY. YOUR PRAYERS HAVE GOTTON US THIS FAR. I NO THAT GOD WILL BE WITH TYLER ALL THE WAY THROW THIS .
WE STLL HAVE A LONG WAYS TO GO . GOD BLESS EACH OF YOU
LOVE FROM TYLER AND FAMILY

Saturday, August 9, 2003 4:44 PM CDT

HELLO EVERYONE
JUST A SHORT UP DATE ON TYLER.HE WAS IN THE HOSPITAL
SINCE TUESDAY, AND CAME TO CAMPER ON FRIDAY. HE WAS PUT IN BEAUSE HE WAS HAVEING TROUBLE WITH HIS BREATHING. BUT
HE IS DOING A LITTLE BETTER .HIS FACE IS STILL SWOLLEN.
,AND HE STILL HAS THE BAD BLISTERS

HE WILL GET THE RADIATION ON MON AND TUESDAY . THE MACHINE WAS BROKEN AND HE DIDN'T GET IT FRIDAY.THEN ALL RADIATION IS SUSPOSE TO STOP.HE WILL STILL CONTINUE TO GET CHEMO
UNTILL HIS TREATMENT PLAN IS OVER .TYLER WILL BE ADDMITTED ON TUESDAY FOR HIS BIG CHEMO.

TYLER DOSN'T FEEL LIKE PLAYING ,AND HE LAYS AROUND A LOT.
HE THINKS HE WANTS TO EAT, BUT WHEN HE GETS FOOD HE CAN'T EAT IT.HE STILL HAS HIS FEEDING TUBE AND TRACH,BUT HIS TRACH HAD AN INFECTION IN IT BUT IS OK NOW . KEEP PRAYING .GOD WILL SEE THAT TYLER WILL GET THROUGH THIS . AND, HE IS GOING TO BEAT THIS CANCER AND BE FREE OF IT ONE DAY.
TYLER AND FAMILY

Tuesday, August 5, 2003 6:19 AM CDT

HELLO EVERONE TYLER HAS REALLY BEEN SICK .HE HASNT FELT GOOD AT ALL FOR THE LAST COUPLE OF DAYS. HE HAS BEEN CRYING WITH HIS LEGS AND JAW HURTING.AND WANTS ASHLEY TO RUB THEM
TILL HE FALLS A SLEEP. HE IS STILL ON HIS PAIN MEDICATION.HE STILL HAS ALL THE BAD SORES IN HIS MOUTH . HES ALSO BEEN THROWING UP AND HAS LOST A LITTLE WEIGHT. HIS DRS SAY THAT IT IS FROM THE RADiATION AND CHEMO.
THEY ARE GOING TO STOP THE RADiATION THIS FRIDAY. THEY DONT FEEL THAT THEY SHOULD GIVE HIM ANY MORE.
HES ALSO WILL BE AMITTED . THIS MONDAY FOR BIG CHEMO .LETS ALL PRAY THAT HE WILL DO REALLY GOOD WITH IT.

ASHLEY SAID TO TELL ALL OF YOU THAT SHES FINE AND TO PLEASE KEEP PRAYING FOR HER AND TYLER AND OUR FAMILY.
SHE WANTS TO THINK EACH ONE OF YOU . YOU ALL HAVE BEEN WONDERFULL.TYLER IS SUCH A STRONG LITTLE BOY . AND WE THANK GOD EACH DAY FOR HIM .HES SO SPECIAL . AND WE LOVE HIM SO MUCH . HES OUR LITTLE ANGEL.A LOT OF YOU CAME TO SEE HIM LAST WEEKEND .WE REALLY ENJOYED HAVEING YOU ALL COME TO OUR HOME. ONCE AGAIN THANK YOU AND KEEP THOSE PRAYERS COMEING OUR WAY . PLEASE DONT FORGET TO SIGN TYLERS GUEST PAGE.
TYLER AND FAMILY

Friday, August 1, 2003 6:02 AM CDT

HELLO EVERYONE , TYLER HAS COMPLETED ANOTHER WEEK OF RADIATION . HE HAS DONE WELL WITH IT . THE BLISTERS IN HIS MOUTH ARE STILL THERE BUT SEEM TO BE BETTER. HE S STLL ON MORFIN FOR PAIN BECAUSE HE HAS A LOT OF JAW AND LEG PAIN.
STILL TAKING CHEMO EACH WEEK . AND HE GIVES OUT OF BREATH A LOT . GETS TIRED EASY. BUT YOU KNOW WE HAVE SO MUCH TO BE THANKFUL FOR . THE LORD HAS WATCHED OVER US AND HAS KELP TYLER WITH US . AND WITH YOUR PRAYERS AND HELP WE HAVE COME A LONG WAYS . WE WILL GET THE NEXT SEVEN MOUNTHS OVER WITH AND BE BACK HOME. WE ARE ALL OK . SO PLEASE KEEP PRAYING FOR ALL OF US AND I WILL UP DATE SOON.PLEASE KEEP VISTING TYLERS WEB PAGE , AND IF ANY ONE WOULD LIKE TO DROP US A LETTER OR CARD OUR ADDRESS HERE IS
LAKE AIR RV PARK
4375 HIGHWAY 162
LOT A-09
HOLLYWOOD .SC
29449 TYLER AND FAMILY

Tuesday, July 29, 2003 6:51 PM CDT

Tyler has been doing good with his radiation and chemo,but the combination of the two caused him to get mouth and throat sores. He had to be admitted because of them and the pain they caused. He was released today and is doing alot better. He still has about 3 more weeks of radiation. Then he will just get chemo. We are at week 22 in his treatment plan, and we have to go to week 52. He still has a while to go before we get to stay in Greenville. Keep us in your prayers.


Love
Tyler and Family

Tuesday, July 15, 2003 4:53 PM CDT

Hello everyone. Here's an update on Tyler. He got to go on his Make A Wish shopping spree. They said he had a ball and was smiling from ear to ear. He also got to ride in a Limo for the first time and got to go to a nice lunch. He had a trial run of his radiation treatment yesterday and they said he did well. He was put under the anesthesia and everything like they will do everyday for the next six weeks of radiation. They had to make a cast to lay Tyler in so he is in the same position each time they do the treatment. The radiation treatment will cause his body not to grow as it should and they said it would make him shorter than he would have grown to later. He does have some back and leg pain and is taking medication for that and he also gives out of breath easy. Other than that, he has been steady playing and even helps to hook up his line for feeding thru the tube. He likes to flush his chemo line, so the nurse lets him do it. He will have a big chemo on the 21st of this month. Aside from being homesick, they are all doing well in Charleston.

I do apologize for not updating this page sooner. Check back later this week and you will find some new pictures of Tyler on here as well.

Dawn

Thursday, June 26, 2003 5:44 AM CDT

Good morning everyone. Darlene called me yesterday and said that they may get to come home in the next couple of days as long as Tyler doesn't have a fever. He did have a big chemo treatment on Saturday and she said he threw up alot on Tuesday. Other than that he is doing pretty good. Praise the Lord. Her email that I got on Monday said that he would have more chemo that day as well. The dr's said he wouldn't be able to talk, but he is talking. He isn't eating like he should and still has the feeding tube that he doesn't like. After 3 more weeks of chemo they will start radiation and then he will have more chemo after the radiation treatments. So they still have quite a while to be in Charleston. The Make A Wish foundation called and Tyler will get to go to Toy's R Us and pick out some stuff courtesy of the foundation. The American Cancer Society was helping to pay the lot rent on the camper trailer they are staying in, the ACS now looking for another organization in helping to do that. If anyone has any suggestions that would help out in that situation, please email Darlene at Turpin10648@aol.com and let her know. Ashley is doing fine and she's really missing being here in Greenville. So please continue to pray for them and post messages to the guestbook. Thanks for everyone's continued support. Darlene said that if they do get to come home, anyone who wants to visit with Ashley and Tyler are welcome.
God Bless You All,
Dawn

Tuesday, June 17, 2003 7:14 PM EST

I talked to Darlene yesterday and she said that the doctors had just left and said that Tyler has a small air leak in his lung where they removed the tumor. They are hoping that it will heal itself and not require another surgery. They cannot continue with the chemo until the lung is healed and said it could take a few weeks. They said that they removed the right upper lobe of the right lung. The tumor had not grown anymore and had actually shrunk some from the chemo he's been getting. They will not start radiation as well until his lung is better. He still has his feeding tube and it has bothered him some recently. His jaw and leg have healed really well. Keep praying for them as they face many more weeks in Charleston.

Dawn

Tuesday, June 10, 2003 10:38 PM CDT

I got a message from Darlene saying that they did have go through Tyler's chest to get the tumor out. They did find that the chemo treatments had shrunk the tumor and stopped it from growing. He was still in surgery when she called me. He will be in ICU for a few days and they are going to leave his trach in for a little while especially since he will be put to sleep daily for his radiation treatments. See the last post I made earlier today it has some more information on it as well. I will post more when I hear from Ashley and Darlene.
Dawn

Tuesday, June 10, 2003 6:11 AM EST

Good morning. Tyler will have lung surgery today . They hope to enter thru his side but if the small spot of cancer is too big, then they will have to go thru his chest. He had to have his jaw unwired last week because he had a temp of 103 which also caused him to miss his chemo treatment for the week. He still has his trach and his leg has healed really well. The therapist came out to fit Tyler for a brace and after watching Tyler run and jump and play, he said he felt that Tyler didn't need the brace or any more therapy on it. Praise the Lord for that! After this surgery he will have radiation on his jaw and lung everyday for six weeks along with chemo. The radiation treatments will require him to be put to sleep for each one. His chemo treatments will probably continue thru December or January. They said they would like for him to have 52 weeks of chemo counting what he has already received. Pray for Tyler and Ashley today.

Dawn

Thursday, May 29, 2003 10:41 PM EST

Hello everyone. Darlene and Ashley sent me an email earlier today and said that they were all doing fine. She said the Tyler was running around on his leg and putting a lot more weight on it. He did have a scan today. They will get the results Monday as to whether or not Tyler will need surgery on his lungs. Let's all be praying and believing that they will not find anything! She said he doing good with his feeding tube and chemotherapy. His jaw is still wired shut and he still has a trach in his throat. He has even learned to say a few words with the trach and wires! She said that the wired jaw is hard on him and he's learning to cope with it. He has received a few miracles already and I believe there are many more to come. He is a very strong little boy and has overcome alot. He will get through this as well. Keep praying for him and Ashley. And Darlene and George for their continued support of Ashley and Tyler.

Thanks,
Dawn

Sunday, May 25, 2003 9:40 PM EST

Hello everyone. I had an email from Darlene on Thursday saying that Tyler would be home for the weekend. He has to return to Charleston on Monday. He will have a scan done on Tuesday to see if the cancer is gone from his lungs. He will be fitted for a brace on Wednesday for his foot. They said that his foot has dropped from the surgery. He has a big chemo on Thursday and he will be back in the hospital. Keep praying for Tyler, he still has a long recovery ahead.

Dawn

Sunday, May 18, 2003 11:49 AM EST

Hello everyone. I apologize for not updating Tyler's page sooner. A friend of mine lost her son to a drunk driver last saturday. He was only 6 years old. Please keep his mother in your prayers as well.

I have received several emails and pictures from Darlene and Ashley. The last one I got was on Friday May 16. It said that Tyler was able to get out of the hospital and go to the camper for a few days before his next chemo. He has to go back to the Dr. tomorrow (mon.) and will also see the surgeon. He will have another round of chemo on thursday. He has to get air through his trach at night and his jaw is still wired shut. She said he doesn't like that at all. She said he went for chemo this past thursday and is doing well from that one. Ashley has to give him a shot every night before he goes to bed. She said that he really wants to eat and cries because he can't open his mouth. He has therapy on tuesday and they plan to unwire his jaw on May 30th. She also said that they will be doing another scan in a couple of weeks to determine that all of the cancer is gone. Ashley said that she is having to suction him out even less now. She says that he is doing good with his feeding tube. Ashley has asked me to thank everyone for all of their support and their kindness. She says that she couldn't have done it without all of you & God bless each one of you.

Dawn

Monday, May 12, 2003 9:18 PM CDT

Tyler had his chemo on Friday. Darlene said that he feels a little bad but that was to be expected. He hasn't gotten sick, but they are giving him an IV in his veins to give him liquids. He also has a little bit of fluid coming out of his ear from his jaw. He still isn't putting much weight on his leg and he has a walker like a grown-up. She said that he doesn't like it. She also said that his leg looks better. Will update more when I hear something.

Dawn

Wednesday, May 7, 2003 9:42 PM EST

I had an email from Darlene this morning and she said that Tyler was doing ok. He gets his big chemo on Friday. He will be in the hospital until sometime next week. If he does good they will let him out. But as long as he has his jaw wired, he will have to stay in Charleston. They had him up on a walker and had him trying to put a little bit of weight on his leg. She said that he hates to be suctioned out from the trach. Thanks for all the prayers and keep praying!

Dawn

Monday, May 5, 2003 9:45PM EST

I talked to Darlene yesterday and she said Tyler had a good night Saturday. His surgery to wire his jaw shut was on Friday and went pretty good. There was a lot of swelling from that. He will get a big chemo this week and they think this dose may make him sick. Which in turn could cause him to vomit. Pray that his tummy doesn't get upset. They will also do another scan to see if the tiny spot on his lung is there or not. Hopefully not! Darlene said that Ashley had Tyler sitting up and had even gotten a laugh out of him. She said that they were all doing ok and to thank everyone for all the prayers and support. Keep posting on the guestbook , because they are reading all of it. Look at the new pictures of Tyler on the photo page. These were taken in the hospital this past week.

Dawn

Thursday, May 1, 2003 5:49 PM EST

I talked to Ashley yesterday and she said that they were supposed to have done surgery on Tyler's jaw because the bone had slipped and they had planned on wiring it shut. They didn't do the surgery because they were afraid he might start throwing up from the feeds they were putting in his feeding tube and they would have to cut the wires if that happened. Ashley said they were going to try to schedule the surgery for Friday (tomorrow) or Monday.They were still working on managing his pain medications. Keep praying everyone. He still has a long road ahead of him, but with all the prayers he'll defeat this disease! I will post more when I talk to Ashley.

Dawn

Tuesday, April 29, 2003 10:10 PM EST

I talked to Darlene earlier this evening and she said that Tyler was going to have to go back into surgery in the morning. The bone and skin flap have slipped just a little and they are going to wire his jaw shut. : ( A minor set-back to his recovery. They are still having trouble controlling his pain and plan to up his dosage tomorrow. Ashley had him propped up a little more today so he could watch TV. He is also off of the respirator and breathing on his own. Although he still has the trach in his neck. They will probably leave that in until after his lung part of the surgery. Will post more when I hear something.

Dawn

If anyone would like a mailing address for Tyler or Ashley, please email me.

Sunday, April 27, 2003 6:30 PM CDT

I need to correct what I last put on here. We had a little mis-communication. Tyler was propped up to one side watching TV. He is in a lot of pain and they are having trouble controlling it. The Dr. gave him some medication that is supposed to be stronger than morphine to ease the pain, but they finally had to let Ashley get in the bed with him and hold him. They do not usually do this, but they thought it might help calm him down. He will be in ICU a little longer than expected. He isn't able to sit up due to the drain holes they have made around his face. He also has a cast on his leg where they removed bone and did a skin graft. There are also drain tubes coming from the cast. The trach will stay in plce until he's way out of the woods and able to breathe again through his nose and mouth. Right now, they don't want him to move or be upset at all. I have a mailing address if anyone is interested in sending Get well cards to Tyler or a card to Ashley to let her know you're thinking of her.Email me at the address below, Hilfiger42@aol.com. Keep Praying everyone. The Lord is good and His mercy endures forever.
Dawn

Sunday, April 27, 2003 1:45 PM EST

Great News!! I had a message from Darlene saying that Tyler was awake and sitting up watching TV!! Praise the Lord. I will make another post as soon as I talk to Darlene or Ashley.

Dawn

Friday, April 25, 2003 10:05 PM EST

I just talked to Darlene, Ashley's Grandmother. She said Tyler was doing pretty good. The Dr.'s said he has a slight fever and that his left lung has some fluid in it. They did put him back on a respirator to help with breathing. He got a blood transfusion earlier today. They have put him back on the morphine also. Yesterday, they had thought Tyler may be able to go out into a regular room instead of ICU and allow him to wake up from the anesthesia/induced coma. They had originally planned on keeping Tyler sedated for 4-7 days. Keep praying guys! God performs miracles of all shapes and sizes 24/7/365. I will post another update as soon as I hear anything.
Dawn

Wednesday, April 23, 2003 5:34PM EST

I just talked to Ashley and she said the Dr's told her Tyler was doing extremely well! Better than they had hoped for. What a trooper! Praise the Lord! They started the surgery early this morning and at 1:30pm today it had already been 7 hours. I last spoke to her at 4:00pm this afternoon. She said that Dr. Day had to remove his whole lower jaw bone due to the cancer eating away at it, BUT the edges of the bone on the cancerous side were CLEAR! The chemo is doing it's job.They did put his feeding tube back in and performed a tracheostomy so he could breathe once they are done. His lymph node glands were removed, and they were able to save the veins from his jaw. The nerve in the face was saved. The Dr. did say that he had to stretch it some and that Tyler's face would appear to be a little droopy, but it would clear up. The plastic surgeon had just started his work when I talked to her last. The surgery to remove the tiny spot on his lung is still on for next week. Dates are unclear as it will depend on how well Tyler is doing. The surgery should be over between 10 and 12 tonight. I will post another update this evening as soon as I hear from Ashley. Keep Praising The Lord!

Dawn

Monday, April 21, 2003 6:21 PM CDT

Tyler was first diagnosed with cancer in his jaw in January 2003. Since then, he has undergone several surgeries to remove pieces of the cancer growing in his mouth and to place a feeding tube in his belly. He has withstood many rounds of chemotherapy and all that comes with it. The fever, upset tummy and the really, really short hair. The feeding tube has been removed and he has been eating! Praise the Lord! Today, they removed his 4 top front teeth. The Dr.'s said that he will have his BIG surgery on Wednesday. It will take about 22-24 hours. His saliva glands will be removed. They told Ashley to expect some serious swelling, but that it would all go down. They are going to remove his lower jaw bone,
replace and reconstruct it with bone from his leg and possibly hip. After he begins healing for about a week, they plan to remove a tiny spot that is on his lung. Keep praying for Tyler.

Dawn
Psalms 118:17 "You will not die, but live to declare the works of the Lord."

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