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hey,
my seven-year-old son is home again after a pneumonia-crisis on 27th of december in 2011. diagnosis in 7/2010: (pons-)glioblastoma mulitforme IV, rezidiv in 11/2011
..now, after all these weeks in hospital-prison we´re home again and it´s so hard to see him dyin...he´s so calm and so small, wearing his tracheostoma. sometimes you see some small tears rollin - and thats the rest of all movements. tears and blinking eyes. it´s `good´ to see.......that there are people around the world, who share these tons of pain, fear. in a way it´s a bit ..easier. ..understand me?
love,
t
t
germany - Tuesday, February 21, 2012 5:27 PM CST
I love and miss you and cant wait to come home... I know this is a tough month for you and I wanted you to know I am here for you!!!! Lots of love, hugs and kisses!!! XOXXO
Miss you Jake.. keep watching over us in NJ!!! :-0
Heather lawson
the worst place in the US, ughh - Wednesday, April 27, 2011 9:57 AM CDT
It's hard to comprehend that it's been six years now since Jakey Bear and Maddie went to Heaven. I was just thinking about Jake today, so I thought I would come to his page. Summer is just beginning for us now...the boys are so big....it makes me wonder what Jake would look like now...handsome as ever, I am sure! We are going somewhere new this year for holidays, to Phoenix, hope it brings lots of happy adventures. I hope the nasty oil spill doesn't come anywhere near your beaches..have a wonderful summer with your gorgeous munchkins. xo
Tracey xo <traceyhewison@shaw.ca>
Calgary , Ab, Canada, - Wednesday, June 30, 2010 2:42 PM CDT
Hi Susan, Mark, little ones, Illene, and especially Jakey Bear. It's me, Yolanda, thinking of all of you and remembering little Jake and his remarkable young life. I love and miss you guys very, very much.
Jake, you will NEVER be forgotten. See in heaven little guy. Love and ((Bear)) Hugs!! ~ Yollie
Yolanda <yhampton@rochester.rr.com>
Pittsford, NY USA - Sunday, November 22, 2009 9:28 PM CST
Hi Susan,
I came to visit our children. Your life has become so full. I know it doesn't fill the hole in your heart, but it does fullfill your life. Hope the holidays are full of love for you and yours.
Suzanne (Mathew Joyner's grandma)
In loving Memory 4-3-1989 to 5-3--2004
Suzanne Hewitt <Ferngarden2@aol.com>
Tracy, CA US - Tuesday, November 17, 2009 8:56 AM CST
checking on mathew M ritz after his last surgery his cousin
andrea M shuluga
st petersburg , florida - Tuesday, September 15, 2009 9:07 AM CDT
I have lost my 5yr. old son to Anaplastic Astrocytoma, on May 30,2009. He was only diagnosed with the tumor 2 1/2 months prior to his death. They told us that it was a grade 3, and he had a 20% chance at a 36 month survival rate. The tumor was inoperable, since it was located in the thalamus of his brain. We quickly began chemo.pills and radiation, which lasted for 20 days, his tumor had doubled in size, and was now pushing his brain over the lateral or central region. We stopped radiation, they offered another form of chemo,but he would have suffered even more pain than he was already in. I convinced my husband that Hospice care, at our home, was the most humane,and loving way that we could honor him,with our love, and the care that only we could give to him. In less than 2 weeks after, our beloved Angel Elijah Richard Lindsey passed away, in our home, while I slept by his side. My husband, 8yr. old son Gabriel, and myself are all a mess!!! I don't know how to deal with this empty pain that I feel. I feel like I could either throw-up from the pain of the loss, or such anger at God, or blame myself. The only thing that keeps me even existing is Gabriel, my son. My husband understands because he also has lost a part of himself. I feel like he is such a distant memory, because I can't feel his presence, I try to smell his clothes anything that is his, but it's just not there. I sleep with his blankie, most of the time I either sleep on the couch where he spent most of his time, in his final weeks, or I will sleep in his bed. Gabriel and my husband will sleep in our bed-Rick snores loud- but I would rather be by myself, and that is when I do my hard crying. I have never cried THIS SORT OF A CRY before. I am worried because I can't dream of him yet, or feel his presence surrounding me. I believe in our Father and Savior the Lord Jesus Christ . I believe that He had a purpose for giving us the gift of Elijah, but it was only for such a small amount of time, he was only a 5 year old baby boy. Why would the Lord take him from us. I know that God has a purpose for taking him, but we,or shall I say that I am the one who feels as if I will never be able to be myself again. Melanie has also died with this boy. I hope that some day this agony will lesson some.I am so withdrawn from my friends and family. I needed to let a little of my sorrows and grief out, to hopefully someone who can understand the pain, anger, sadness, and complete emptiness I feel inside, as a mother. I have to keep going on,and getting up and living, because I am still blessed with my other Angel Gabriel. If anyone can give me some advice I would really appreciate it. Thanks, Melanie Lindsey
Melanie Lindsey <richardlindsey@att.net>
Costa Mesa, CA United States - Sunday, July 26, 2009 7:06 PM CDT
Hi Susan, I always think of you and Jake this time of year. My Matty would have been 20 on April 3rd. This May 4th he is gone 5 years. Still hurts.
Suzanne (was in FL now in Calif)
Suzanne Hewitt <Ferngarden2@aol.com>
Tracy, CA UA - Saturday, April 18, 2009 2:50 PM CDT
Love you guys....
XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO
Julie and all
Julie Dornisch <juliedornisch@yahoo.com>
Minneapolis, MN - Wednesday, April 8, 2009 12:48 AM CDT
I think about Jake often-he was such a special boy. I know he is looking down from heaven giving you a big smile and lots of blessings.
Beth Steiner <bethrs@netscape.com>
Broomfield, CO usa - Tuesday, April 7, 2009 11:35 PM CDT
XOXOXOXXO Just thinking of Jake and how long it has been. Seems like his spirit is alive and well in those little monkeys you have crawling all over you these days. Blessings to be sure... they have a very special and powerful angel looking down over them.
Mary Kay & gang <mk@mkminc.com>
Lake Worth, FL - Tuesday, April 7, 2009 7:53 PM CDT
susan and mark... Merry Christmas with the new babies! I bet they are all growing so fast... and Happy belated 10th birthday jakey bear! We miss you sweet boy! I look at that beautiful face... it has always melted my soul. thank you for touching my life.. love you
Kim <dakk2222@comcast.net>
IN - Monday, December 22, 2008 10:13 PM CST
Happy 10th birthday Jake. I am truly honored to celebrate my birthday on the same day as you.
((HUGS)) to your family.
Jennifer Hartley <hartley1025@verizon.net>
- Monday, November 17, 2008 11:58 AM CST
Hello my dear friends,
Just stopped by to see your beautiful Jakey bear. He is eternally young and beautiful. He is always remembered, even by those who did not know him as well as we would have liked. I can only imagine how much you much miss him. At least he has his grandparents with him in heaven. All are missed and loved, very much... xoxoxox Yollie
Yolanda <yhampton@rochester.rr.com>
Pittsford, NY United States - Monday, September 22, 2008 9:31 PM CDT
Dear Susan and Mark,
I wanted to stop by and let you know that I was thinking about you all and Jake as well as your children. Susan, you and Jake will always have a special place in my memory because you helped me so much when Katherine was first diagnosed with DPG.
Enjoy your babies!
Love,
Diana, Mother of Angel Katherine
Diana Cross <diana-99@comcast.net>
Houston, TX - Thursday, April 10, 2008 8:33 PM CDT
Susan & Mark,
Congratulations on the new additions! We still think of you often and continue to keep you in our prayers.
The Boak Family <cabincreek@core.com>
Fowler, MI - Friday, March 28, 2008 9:43 AM CDT
Love the new site, Susan!!! Thanks!
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Hope you guys are well. Let's do dinner one night next week if you are around.
MK and Todd <mk@mkminc.com>
- Monday, March 3, 2008 11:04 PM CST
Dear Susan and Mark,
About two years ago, I signed Jakey Bear's guest book. I just noticed a note from Susan in Cheyenne Fiveash's guest book, so I thought I would visit this site again. How wonderful that you now have three children, but how sad, it also is, that none of these children will ever know Jake on this earth.
God bless you all.
Grace and peace,
~Colette
A Collect For Fridays:
Almighty God, whose most dear Son went not up to joy but
first he suffered pain, and entered not into glory before he
was crucified: Mercifully grant that we, walking in the way
of the cross, may find it none other than the way of life and
peace; through Jesus Christ your Son our Lord. Amen.
The Book Of Common Prayer, Page 99
Written By William Reed Huntington (1838-1909)
Colette
Clifton Park, NY U.S.A. - Friday, February 29, 2008 5:27 AM CST
Susan and Mark:
Thank you so much for sharing updated pictures - you children are beautiful! I've missed your updates and think about Jake and your family often since I found you on Caringbridge through friends. I noticed the NC references on your web page...Funny, we moved to the Charlotte area about 2 years ago from Palm Beach Gardens. We miss FL, but love it here, too! Best Wishes always.
Jill Mondo
Mooresville, NC - Sunday, February 24, 2008 1:54 PM CST
So glad to hear that all is well with your family.
Your children are all so beautiful.
God Bless you.
www.caringbridge.org/visit/kathydubois
Jackie
WPB, FL - Thursday, February 21, 2008 12:00 AM CST
Dear Susan, Mark and Family,
I haven't visited Caringbridge sites in a while. However, I ran across a posting on Maddie's site about your newest blessings. Congratulations! I am so happy for you all.
Love,
Diana, Mother of Angel Katherine
Diana Cross <diana-99@comcast.net>
Houston, TX - Saturday, February 2, 2008 9:17 AM CST
Hello,
I check in here to see if there any updates. Now I see there are two new blessings to your family. Congratulations! Since Elijah passed away, we also have had 2 little girls. We offer prayers for the 3 little ones to grow and prosper in health and happiness.
Love and prayers,
The Levines
Craig Levine <wakbyfaith@yahoo.com>
Pawnee, IL - Thursday, January 17, 2008 4:02 PM CST
I check in once every couple of months and I was thrilled to see your updates. I am so happy for all of you. I know you miss your Bear everyday, that I am sure will never stop. When Jake was battling, I was there with you in thoughts and prayers everyday. I am so happy to be here as you rebuild your family. I was shocked to read that you had twins. Congratulations!!! When you get a chance, can you post a pic of Colton? His baby pic was gorgous. The twins are absolutely beautiful too. I am so glad that you are all well. Thanks for updating, it is great to read your posts. Hope the babies are allowing you to sleep a bit more.
Terri <tlc2866@sbcglobal.net>
Manchester, CT - Tuesday, January 15, 2008 8:22 PM CST
It has been months since I checked your site. I think of you often although we have never met. I am so happy to learn of your blessings! Congratulations on the arrival of your son Cannon and daughter Kate! I am so happy for you and big brother Colton. Praying that 2008 will continue to bring you many blessings and more sleep.
Stacie Shotwell
Poulsbo, wa - Thursday, January 3, 2008 6:03 AM CST
Wishing the Griffin Family a happy, healthy New year.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@comcast.net>
boynton beach, fl usa - Monday, December 31, 2007 9:18 PM CST
Wishing you a special christmas with the babies this year! and remembering jakey bear.. thanks for updating us on your lives for keeping jakeys page up.. I love to come look at that beautiful face. What a beautiful boy! Now you have 3 more who would of guessed??? I know God knew... but its a miracle and huge blessing ... God bless you !!!
Kim <dakk2222@netnitco.net>
IN - Sunday, December 23, 2007 5:53 PM CST
Susan and Mark, Congrats on your twins. I check on your site often in hopes to hear how you are and was so excited to see God blessed you with two babies!!!!!
You're always in my heart for leading us to Protocel. Felicia is doing well. I would love to talk to you ... maybe after the New Year. Much love and praying for you all.
Lisa Guajardo <lisamidwife@comcast.net>
Pompano Beach, - Friday, December 21, 2007 3:28 PM CST
Sending wishes for a wonderful first Christmas with the twins and I'm sure Colton will be really loving the lights and festivities more this year...and brother Jake will be all aound...my heart and prayers are with you all Susan and Mark.
Peace and Wellness.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@comcast.net>
boynton beach, fl usa - Friday, December 21, 2007 10:08 AM CST
WOW... I cant believe you had twins now too@! Congradulations that is so so wonderful! the sleepless nights wont last forever. but I know they are so exhausting.. the babies are beautiful! and you still have la la kitty... I have been thinking of you all alot, and never got back on to sign.. But I had to see jakey bears beautiful face. He was one of the most beautiful boys i have ever seen. ( i have 3 of my own) Boys are pretty neat! I cant believe jakey would be 9... I think he would be a more mature jakey but the same spirit and loving nature.. they say they are who they are by age 5... and I know by experience that mine are definately like they were when they were young. just older and into bigger things. Like video games.. and instead of thomas or barney, its power rangers. they just look like a more mature version of who they are inside. I think Jakey would be such an awesome big brother.. I dont know what it is like to have, love and loose a child all by the age of 5 . i wish I could change that for you.. But look at the blessings since.. I think Jacob talked to God about you needing to stay busy! So until your with your jakey bear again.. you will have a lifetime of memories, smiles from the new young babies 3 under 2 wow! amazing. thank God you and mark stayed together... I know a few couples on caringbridge that divorced after loosing there child. Merry Christmas enjoy the babies!
Kim <dakk2222@netnitco.net>
IN - Thursday, December 13, 2007 10:11 PM CST
C is for the Christ child, born upon this day
H is for the Hope he gives upon his way
R is for the Risen savior who loves me so much
I is for the Infinite gift of his loving touch
S is for the Sin he lay his life down for
T is for the Trust of my heart's open door
M is for the Master, the ruler of my life
A is for the Altar, where I may lay my strife
S is for the Serenity that he gives to me
Praying for blessed Christmas wishes & the hopeful prayers for a Happy & Healthy New Year to you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.
The Prayer Bears
Barb
- Saturday, December 8, 2007 11:13 AM CST
I feel absolutely blessed to have the same birthday as Jake's...of course... not the same year. LOL
Happy Belated Birthday Jake!
Hope your 1st Christmas with your newest additions is wonderful!
Jenn Hartley <hartley1025@verizon.net>
- Monday, November 26, 2007 1:34 PM CST
Happy Birthday Jake
Marie <BaliTwins@aol.com>
Boca Raton, Fl - Monday, November 19, 2007 7:11 PM CST
Dear Susan and Mark,
I cannot imagine how hard it is without Jakey. I think it was wonderful you were able to celebrate him with Colton and the twins..and friends. Jake should always be celebrated. ALWAYS. I know he is forever in our hearts. Happy belated Birthday Jake!
Love
Kathy and Dave
caringbridge.org/fl/david
kathy <joy2jak@comcast.net>
boynton beach, fl usa - Sunday, November 18, 2007 3:42 PM CST
CONGRATULATIONS....Enjoy those babies..I too had my kids close...Now they are 8-9-10 and the times just goes by so fast...God Bless...
Denise and Steven
STEVEN'S WEBSITE
Long Island, NY - Saturday, November 10, 2007 3:51 PM CST
Never a dull moment! Hope you guys get some rest...what blessings you have.....how old will Colton be? Will be thinking of Jake with special birthday thoughts and a prayer. Keeping you guys in my heart always.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@comcast.net>
boynton beach, fl usa - Monday, November 5, 2007 7:53 PM CST
Susan and Mark:
Congratulations on your new additions! May they have their special angel looking after them always!
The Mondos
Mooresville, NC - Sunday, November 4, 2007 5:08 PM CST
Griffin Family,
Congratulations on the beautiful twins! They are adorable. What a blessing for such a special family. I haven't stopped by in so long and wanted to check up on you. I still pray for your family everyday.
Love and prayers,
Misti Herrera mother to angel Zach www.caringbridge.org/nm/zach <dmherrera@pvtn.net>
Artesia, NM USA - Wednesday, October 31, 2007 10:43 PM CDT
Oh, How Exciting to hear your news!! We would love to drive up and help you with the babies!! Zach could play with Colton and I could take over with the twins and let you take a nap!!! It would be my honor and privilege and give you some relief!!
I'd be happy to do laundry or ironing or cleaning if that is a greater need!! Please let us help!!!
Blessings, and so wonderful to hear from you!! We were just talking about Jakey Bear this week!!
Katrina Gray
Katrina Gray <katrinagray3@yahoo.com>
- Friday, October 26, 2007 4:37 PM CDT
I am so happy for your family. You deserve all the happiness God can give to you. You are a beautiful bunch and you must be so proud!
I have followed this site for years and whenever I have a moment of frustration I come here to see that beautiful smiling face of little Jakey bear.
I thank you for letting me come here and God Bless you all.
www.caringbridge.org/visit/kathydubois
Jackie
WPB, FL - Wednesday, October 24, 2007 9:30 AM CDT
I haven't stopped in for what seems like forever. I am Nicholas Castillo's cousin. I was checking his page and decided to stop in. I want to say CONGRATULATIONS on the two new additions. Your family is BEAUTIFUL. Best wishes as always
Heather <sienna058@aol.com>
St cloud, fl usa - Tuesday, October 23, 2007 11:34 AM CDT
Hey, I read about the new additions on Maddies site! WOW!! God has blessed your family, yet again!!! Two new babies, plus one just at two, whew! Your so blessed! Jake will be a busy Angel!!! I just want to let you know that I think of Jakey Bear often, and will never forget him. When you think back on it, it's amazing how many "Angels" we know now. Our missing family members are together. May God keep blessing your "big" family 4/ever!
Peace and Prayers, always
4/j's
Julie, Jeffery and Joseph's mom www.caringbridge.org/fl/jeffery <www.jsample2@comcast.net>
Jacksonville, fl usa - Friday, October 19, 2007 7:43 AM CDT
Scott has sent me hear to read the good news in your life. What an exciting time in your life. Remember you can catch up on sleep when the children graduate from College, so there is a light at the end of the tunnel. God bless you and your new wonderful little additions to your family.
Lorrraine <lorraine_bell@rogers.com>
Toronto, ON Canada - Friday, October 19, 2007 6:57 AM CDT
Congratulations on your new editions! Susan and Mark I couldn't be happier for you both. All three of your beauties will have big brother Jake always watching over. Can't imagine the sleep deprivation.....I know I experienced it but it has been pulled from my memory!!! Believe it or not...Dave just got his driver's permit!! Many Blessings,
Kathy
caringbridge.org/fl/david
kathy <joy2jak@comcast.net>
boynton beach, florida usa - Thursday, October 18, 2007 7:15 PM CDT
Sent by Scott to tell you hello and congratulations on the wonderful news! What darling picture you posted; can't look at them without smiling!!
Blessings to your whole family.
Becky Smith <beckysmith62@aol.com caringbridge.org/nc/sarahsmith>
Smithfield, NC - Thursday, October 18, 2007 5:16 PM CDT
Congratulations on the new additions! Scott F sent us here to check on you! We'll add you to our prayer list.
Vicki C & Family
Mom to Morgan, 14, ALL Leukemia
corson/lamorey family www.caringbridge.org/visit/morganelizabeth
- Thursday, October 18, 2007 11:22 AM CDT
God is good. Congrats on the babies!
Tina <lsutigerinbama1@bellsouth.net>
Alabaster, al usa - Thursday, October 18, 2007 7:23 AM CDT
Congratulations on those beautiful twins! They are adorable. May God continue to fill your hearts with His love.
Shannon Ede <shannon@edefamily.net>
Round Rock, TX - Wednesday, October 17, 2007 6:49 PM CDT
Susan, Mark, Colton, Jakey Bear in Heaven,
CONGRATULATIONS on the safe arrival of your gorgeous new son Cannon and daughter Katherine! You are so very, very blessed and I could not possibly be any happier for you, just ecstatically THRILLED!
Best wishes always,
love Tracey xoxo and family xoxo HAB <traceyhewison@shaw.ca>
Calgary, Ab, Canada (still no Uggs, ha ha!) , - Tuesday, October 16, 2007 8:50 PM CDT
I was sent here from Zachary Finestone's page, Congratulations! The babies are just adorable. I will keep your family in my prayers.
Dawn <drutkowski@brenntag.com>
Oakmont, PA USA - Tuesday, October 16, 2007 9:39 AM CDT
I was sent here from Zachary Finestone's page - and I'm glad I was! Congrats on your two beautiful babies. The picture you have of them is just precious!
Jennifer <KidsCancerCrusade@yahoo.com>
- Monday, October 15, 2007 5:08 PM CDT
Congratulations on your beautiful babies! They are just adorable. I'm praying for your family.
Ann Watts <bubbasoldlady@cebridge.net>
Jacksonville, AR USA - Monday, October 15, 2007 3:47 PM CDT
Congratulations they are beautiful! What joy for you and your husband. I use to follow your site for years but lost your site out of my favorites. Thanks to Zach Daddy O I am back. Colton is gorgeous also....
www.caringbridge.org/page/tiffanie
Deneen Gethouas <dgethouas@comcast.net>
Enola, PA USA - Monday, October 15, 2007 11:45 AM CDT
They're BEAUTIFUL!!! Congrats
Denise Scott <dscott@gencode.com>
Dade City, Fl United States - Monday, October 15, 2007 10:57 AM CDT
Wow! Congrats to you twice!! :)
Jamie
Gpt, MS - Monday, October 15, 2007 8:19 AM CDT
wow. am so glad I checked in.
thank you...
Mary Alice Dorschel
Virginia
mom of LIzzie BT survivor
m dorschel <jay.dorschel@verizon.net>
suffolk, - Sunday, October 14, 2007 7:47 PM CDT
Susan, You make the most adorable children!
LIsa <lisa.moser@allina.com>
Forest Lake, MN - Sunday, October 14, 2007 1:30 PM CDT
Like so many others who have signed, I have also been sent here from Zach Finestone's site. I checked out your new pics, and those twins are simply adorable! Congratulations on the new additions
Sherri Ross <slr8800@aol.com>
Concord, NC - Sunday, October 14, 2007 10:43 AM CDT
Stopped over from Zach's site to say hi and check out the family pics. Yay! Twins!!! Congratulations on the new additions to your family :-)
hugs,
Heather, mom to Brianna dx ALL , www.caringbridge.com/ny/mylittlesunshine, daughter to Pete, dx CLL. SCT 8/3/06 www.caringbridge.org/visit/petek
Syracuse, ny USA - Sunday, October 14, 2007 9:22 AM CDT
AWWWW...CONGRATULATIONS MARK AND SUSAN...
What an amazing gift! Twins!! They are aboslutely beautiful!
I came here via Zach Finestones, (I've lurked there for years), I used to have your link, but when I had a major crash, I'd lost it! Glad to have it back, so I must thank Scott!
A lil sleep deprived is nothing, compared to those beautiful faces!!
Love to each and every one of you.......
Eva <kwfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Sunday, October 14, 2007 5:31 AM CDT
Susan, we just couldn't be happier for you both! I am so happy to see the update! Enjoy them!
Susan and Scott Stein <hilltophedgies@msn.com>
Layton, UT - Saturday, October 13, 2007 10:42 PM CDT
Congratulations!! I am so happy for your double blessing!! I have also come over by the "gentle" prodding of Scott. (the big meanie!) I pray for some rest and easy nights ahead...
Darlene
Peterborough, Canada - Saturday, October 13, 2007 11:26 AM CDT
I followed Jake's website, and was so sad when you lost him. I admit that I hadn't checked back for awhile, due to lack of updates.. but after seeing your site listed on Zachary Finestones (faithful lurker there) I was thrilled to read about your newest additions! I know that Jake must be smiling from above.
God bless you all, and thanks for the update.
mary burns
Albany, NY - Saturday, October 13, 2007 11:22 AM CDT
What a beautiful family you have. I am sure they will all know Jake as the Angel that leads them through their lives. I followed the link on Zachary Finestones page to your site.
Susan Foster <CLF8987@aol.com>
Wright City, MO USA - Saturday, October 13, 2007 9:45 AM CDT
Congratulations on your newest family members.
Jenn Hartley <hartley1025@verizon.net>
- Saturday, October 13, 2007 7:42 AM CDT
I caught my breath when I saw Jake's picture...I followed his story from beginning to end, and was so, so sad when he went home to Jesus. All of your babies are just beautiful! I wish you the very best of good health for them. Oh...Scott sent me, too...and I'm so glad he did!
With Much Love,
Miss Judy
Miss Judy <taejme@aol.com>
Naples, FL - Friday, October 12, 2007 10:15 PM CDT
How precious!!! Congratulations!!! Scott sent me over too, and I'm glad he did...
michele
ny - Friday, October 12, 2007 8:29 PM CDT
Congratulations! Beautiful babies - and I love the set up of the blue/pink blankets and their heads turned towards each other!
Karen <kchapin3@bellsouth.net>
Birmingham, Al US - Friday, October 12, 2007 6:05 PM CDT
You don't know me but Scott pushed me over here to visit. CONGRATULATIONS on your new babies. My, your Jake sure was a cutie! I'm sorry I never got to "meet" you before. I am sure Jake is looking down with his approval of his newest little siblings. Get some rest, but enjoy every moment.
JC
Louisville, KY - Friday, October 12, 2007 5:15 PM CDT
OH! I am so thrilled to read this news! The babies are perfect! I am so happy for you. I came here through Zachary's site, and was so excited to see the link. You see, I followed Jake for a looong time. When my computer blew up, I had to buy a new one and lost all of my favorites. I could not for the life of me remember your last name, and could never find Jake's page again. I remember starting to follow your story shortly after my own son became sick and I was new to CaringBridge. Jake was the first sweet child to teach me that I would soon become unbelievably "attached" to the special children that I "followed". I could never imagine crying and feeling so lost when he passed - a child I never knew! Now, unfortunately, it has happened to me a few times. It breaks my heart more each time a family has to endure what you have.
I am so happy Scott shared your news, I would never have known! Bless you and your family. You deserve nothing but joy and happiness!!! And thank you for sharing Jakey's story....I never had a chance to say that.
Jennifer Smith <lakerdog2@yahoo.com>
Hidden Valley Lake, CA USA - Friday, October 12, 2007 2:33 PM CDT
OMG! They are so very beautiful. You are doubly blessed with some well deserved happiness. I just know Jake is smiling.
Monica aka obediant Zach lurker <rulonm@hotmail.com>
- Friday, October 12, 2007 2:14 PM CDT
Awww, Congrats on the twins, they are precious.Lurker that flew over from Zacks site, you know that Scott scares me, big ole bully..lol..Not!!. Wishing you all the best, I'm sure your sweet angel is filled with joy for you all.
Karen
USA - Friday, October 12, 2007 1:58 PM CDT
CONGRATS!!! What beautiful babies!
alyssa godmother to www.caringbridge.org/ca/bennettboys <sabiemc@aol.com>
- Friday, October 12, 2007 1:53 PM CDT
Congratulations from another lurker of Zachary Finestone! I followed your site before and I'm happy for your family. I'm sure Jake is pleased as can be for his mommy and daddy!! May your days be filled with joy and sleep as you continue on.
Linnae Bosma <l.bosma@comcast.net>
Minneapolis, MN - Friday, October 12, 2007 12:49 AM CDT
Congratulations on the twins. They are definitely Heaven sent and kissed by a beautiful angel named Jake up above. We were sent over from Zachary's site, but we also follow your site. I know Jake is so proud of his siblings.
Alisa Bentley
Chapmanville, WVq USA - Friday, October 12, 2007 12:17 AM CDT
Congratulations! Twins are so special. I know because I am one. :) Twins run in my family.
Zachary's site sent us over, but I use to follow your site. God bless!
C. Wright
Tennessee, - Friday, October 12, 2007 12:01 AM CDT
Sent over from Zachary's page - CONGRATULATIONS on your sweet new bundles. All my best!!
Lisa <loumicsmom@tx.rr.com>
Cedar Hill, TX USA - Friday, October 12, 2007 11:21 AM CDT
Congratulations on your two wonderful additions.
I am sure Little Jake put in a good word for you.
You can sleep when you get to be my age (haha).
Grandpa Mike <spinnish@yahoo.com>
SW of Nowhere, NH USA - Friday, October 12, 2007 10:55 AM CDT
Congratulations on your bundles of joy!!!!!!!!!!! Jake is certainly watching down on you and very proud big brother! I am not saying this just because Scott is a bully and told us to leave a msg...I am truly happy for your blessings!
Deb
Fargo, ND USA - Friday, October 12, 2007 10:54 AM CDT
Scott - see we are coming to visit this site as instructed.
Wonderful news on the babies. I had not checked Jake's site for a long time due to lack of updates but now I can see you've been busy. Enjoy them!
Janet
Iowa
Janet
- Friday, October 12, 2007 10:45 AM CDT
I have not read Jake's site for quite some time now. So when Scott Finestone said we should check it out (for happy news) I was very excited to do so! What wonderful news indeed! Congratulations on your new babies! I'm sure Jake picked the best two babies to send to your wonderful family! Congratulations and I wish you all health and happiness!!
Heidi
Fridley, MN - Friday, October 12, 2007 10:33 AM CDT
Under threat of locusts (or worse) Scott Finestone has directed his faithful readers to your site. Since my house is messy enough without locust infestation, I ran--or at least my fingers did--to your site only to discover the real reason Scott wanted us to visit. I had thought it was for YOU, but I was wrong. It was for US, for people everywhere who need to see that joy really does come in the morning...that in the face of unfathomable loss new hope and promise can be born...that love never fails. You have a beautiful family. I know that your children will grow and prosper in the glow of Jake's light...a legacy that even death cannot interrupt. God bless!
Sue G
- Friday, October 12, 2007 9:33 AM CDT
What beautiful news! Enjoy each and every precious sleepless moment!
Prayers and hugs,
Connie Frisby-Griffin <cdlfg@cox.net>
LaVista, NE - Friday, October 12, 2007 8:21 AM CDT
I heard from Mr. Griffin that your babies had arrived. I checked your website every day this week but nothing....then today, reading Zach's (Scott) site, I saw you had announced your wonderful news.
They are beautiful! I know Trish has had a great time playing Grandma..
Congratulations! Your family continues to be in my prayers.
Buff Clark <bclark@ihsaa.org>
Carmel, IN - Friday, October 12, 2007 7:50 AM CDT
I'm so happy for you! God bless you and your family.
Debbie
Largo, FL - Friday, October 12, 2007 7:43 AM CDT
As told by Scott Finestone, (I always do what he says, when he says sign, I surely do). I came to Jake's site, after a long absence, and am so excited for you all. What a wonderful surprise. Congratulations on the birth of the twins.
Nancy Irving <bnirving@sympatico.ca>
toronto, Ontario Canada - Friday, October 12, 2007 7:33 AM CDT
Congratulations to both of you! What joy for your whole family.
God Bless all of you.
Beautiful babies....
www.caringbridge.org/visit/kathydubois
Please visit Kathy and leave words of encouragement
Jackie
WPB, FL - Friday, October 12, 2007 7:03 AM CDT
I am coming here from Zachary Finestone's site to send my congratulations! Jakey Bear is certainly smiling down on your family.
Bethany Moore <themoorefive@comcast.net>
Poughquag, ny - Friday, October 12, 2007 6:59 AM CDT
I'm sooooo excited for you!!! Congrats on your new additions to the family. I know that Jake is looking down from heaven watching over all of you with a huge smile on his face. Good luck with the sleep and know that I'm keeping all of you in my thoughts and prayers!
Lisa
Lynnwood, WA - Friday, October 12, 2007 4:39 AM CDT
Scott Finestone sent me over here, and I'm glad I stopped by. What WONDERFUL news for your family! I'm sure big brother Jake is looking down and beaming with joy at his newest siblings. Congratulations to all of you!
Juliet (Michelle Jorgensen's cousin) <us_browneyes@hotmail.com>
Colorado Springs, USA - Thursday, October 11, 2007 11:39 PM CDT
Congratulations on your brand new babies from a mother of twins (Dave & Diane aged 37). When you mention "sleepless nights" in the future, I will remember those days and treasure those times so many, many years ago! Sending blessing to your family... be sure to get a journal and write down a little something each day! I did not do that and REGRET not having a journal... wish I had thought to do the "journaling", as it would have helped my failing memory of today! (lol) Enjoy each day, knowing that your Jake is keeping watch over all of you with a smile! (*_*) Sending via space... a hug for each baby from a mom of twins! Take Care. P.S. Scott Finestone is a mutual friend that shared your GREAT NEWS...!
Sondra Hill <circle92@bellsouth.net>
Greenacres, FL USA - Thursday, October 11, 2007 11:03 PM CDT
congratulations on your new little MIRACLES!! Used to sign in all of the time and since then lost all links on computer more than once! Last time I checked Colton had just been born!! I am so happy for your family and I am positive Jake is smiling down on you!
Cassandra <cmraven@msn.com>
Albuquerque, NM - Thursday, October 11, 2007 10:42 PM CDT
I AM SO HAPPY FOR YOU AND MARK.. WHAT AN AMAZING GIFT. IM SURE IT WAS HEAVEN SENT!! I KNOW THEY WILL BRING MUCH LAUGHTER TO YOUR LIVES.. MY CO WORKER HAS TWIN BOYS OMG I HOPE YOU GET LOTS OF REST NOW.. CAUSE DOUBLE TROUBLE AT TWO HAHA.. WELL I JUST WANTED TO SAY CONGRATULATIONS AND IM SO GLAD YOU FINALLY UPDATED.
ALWAYS IN OUR THOUGHTS.
AUDRA
AUDRA MALONE <GRLWNDR68@HOTMAIL.COM>
STUART, F - Thursday, October 11, 2007 10:35 PM CDT
Congratulations times 2 - how wonderful to be sleep deprived for two precious babies. I came here straight from Zachary's page to avoid the wrath and rantings of your friend Scott. He is very excited with your news and pink and blue bundle of joy. I think he should be rewarded with double diaper duty. Enjoy your wonderful new additions to your family. All the best.....randy
randy <ranweiss@comcast.net>
- Thursday, October 11, 2007 9:11 PM CDT
CONGRATULATIONS!!!! Looks like Jake is one amazing guardian angel. God Bless your family as you begin this next phase in your journey.
Anna
MN - Thursday, October 11, 2007 8:20 PM CDT
WOOHOO!!!
FINALLY, an update!
XOXOXO...
Julie-Maddie's mom www.caringbridge.org/mn/naddie
Julie Dornisch <juliedornisch@yahoo.com>
Mpls., MN - Thursday, October 11, 2007 8:11 PM CDT
Susan, I think you have some rather big news to share with all your loyal readers.....:-))))))
Tracey xoxo <traceyhewison@shaw.ca>
Calgary, - Thursday, October 11, 2007 1:08 PM CDT
you are in my thoughts
Becky
Ann Arbor, MI - Sunday, September 23, 2007 1:25 AM CDT
Thinking of you
♥
Liz Shay <lshay90@aol.com>
mpls, mn usa - Wednesday, August 8, 2007 1:43 AM CDT
Just getting my 'Jake' fix...I love that smile, his bright happy eyes...what a gift. Hoping all is well. I guess Colton is walking by now! Just know that David and I will always keep Jakey in our hearts and thoughts. Always.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
Boynton Beach, FL USA - Tuesday, May 1, 2007 6:15 PM CDT
susan, it cant be over 1 year since you have updated?? or shared photos of the baby?? my goodness time flys He is over a year old then... Please update! I come by to see jakey bears precious face, i dont always sign, but I think about you alot! Hugs
Kim <dakk2222@netnitco.net>
IN - Monday, April 16, 2007 10:11 PM CDT
Hi
I came across your site from prayersfrommaria. Your son was a handsome little man. Once I saw your site i quickly went to it reason is i have a daughter name Dasia she is 9 years old she was diagnosed with a difuse pontine glioma on 3-23-05. She is a patient of St.Jude there they same the same thing. She was only expected to live 6-9 months but now it has been over 2 years and she is in her 3rd year of chemo so they are calling her there miracle child. I have searched around trying to see if any child had been this long since they say it is very rare, so when I saw how long your son fought this horrible disease it caught my attention. I don't know many people especially not ones that have dealt with anything like this. Or for there child to have went this long, I guess I am looking for some pointers. Is there anything you would like to share. I will listen to just about anything. If you would like to visit Dasia's site its caringbridge also then dasiaatkinson-
you are in our thoughts and prayers-
God Bless You
Kristina & Dasia <cwikrefunds@bellsouth.net>
Mobile, AL USA - Tuesday, April 10, 2007 11:41 AM CDT
Holding you in prayer as Jake's Homegoing anniversary approaches. Praise God that He knows our pain. Praise God that we know His Hope. May your hope in the Saviour grow jubilant in your heart as we look forward to our own resurrection and eternal life with our precious Lord and beloved children. Have a blessed, blessed Resurrection Sunday.
In His Love,
Yolanda Rogers
http://www.galatians5.com
Mom to Anna <weloveanna@earthlink.net>
Alt Springs, FL USA - Friday, April 6, 2007 6:47 PM CDT
Jelly beans & Jesus
Have you heard the story of the jelly beans?
Little jelly beans
Tell a story true.
A tale of our Father's love
That's just for me and you.
GREEN is for the new spring grass.
YELLOW is for the sun above.
BROWN is for the soft earth where
People sat hearing of HIS love.
PURPLE'S for the robe he wore
RED is for that precious wine.
BLACK is for the sins He washed
From your soul and mine.
BLUE'S for the sadness of
HIS friends and family,
and is for the glory of the Day
HE rose for you and me.
Now that you've heard the story
You know what each color means.
The story of our Father's love
As told by jelly beans.
So when you see jelly beans on this Easter season,
stop and remember,
Jesus is the reason!
"For God so loved the world, He gave His One and Only Son that whosoever believeth in Him should not perish, but have everlasting life."
John 3:16
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears
Prayer Bear Barb
- Saturday, March 24, 2007 9:17 PM CDT
Thinking of you.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
Boynton Beach, fl usa - Friday, March 23, 2007 6:51 AM CDT
Hi Susan
I have not stopped by for awhile but you are in my thoughts often. I hope you and the family are doing well. Just wanted you to know that "I remember"
Love and Prayers
Teresa (mommy to the greatest love of my life-Marcus-forever in my aching heart)
www.caringbridge.org/mn/markie
Teresa <trrn@sympatico.ca>
Toronto, On Canada - Monday, March 12, 2007 5:40 PM CDT
Hi Susan,
Just stopping by to let you know that I have not forgotten you (or Jake, Mark or Colton!!) Colton must be getting so big now and toddling about, it is a picture in my mind that brings a smile, just as Jakey Bear always does also. I visit his site often, hoping for news from the Griffin clan. Quinn and Callum have grown so big, Susan, Quinn is now 12 (!) and Callum is almost 8, the time has flown past. Quinn goes to Junior High School next year, I can hardly believe it, we are in the process of choosing which school right now. We had a marvelous holiday in Kauai for my sister's wedding, the highlight of the year thus far. We are very much looking forward to digging out from under all this snow (I STILL need to get myself a pair of Uggs!!) and greeting spring and summer...but fall is still my favorite time of year :-) The train tracks and Pooh video's have been replaced with dirtbike magazines, tamagotchi's and DS's but they are still my 'little boys'. I will have to send you some new photos...maybe I can have some of Colton back?? ;-)
You are always in our prayers and thoughts,
hugs and love,
Tracey and family xoxo HAB <traceyhewison@shaw.ca>
Calgary , Ab, Canada, - Tuesday, March 6, 2007 10:38 AM CST
May the road rise up
to meet you
may the wind be
always at your back
May the sun shine warm
on your face
And the rain fall soft
upon your fields
And until we meet again,
May God hold you
in the palm of his hand.
—an old Irish Blessing
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Prayer Bear Barb
- Monday, February 26, 2007 1:41 PM CST
Dear Susan,
We were speaking of Jake yesterday with a friend who was over at our house and playing with the Thomas Races the Rails toy that Jake gave us several years ago. It is still set up on the counter in the Laundry Room!
We miss hearing from you and hope you are all well. It's been almost a year and are hoping that we can hear an update from you. We have you heavy on our hearts.
Praying for you,
Katrina
Katrina
- Friday, February 23, 2007 1:57 AM CST
“Love...It bears all things, believes all things,
hopes all things, endures all things.”
(1 Corinthians 13:7)
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Prayer Bear Barb
- Tuesday, February 13, 2007 3:17 PM CST
Just stopping by to let you know you are all being thought of. Jake is one of those beautiful children you have the honor to meet, and never, ever forget. Blessings
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
Boynton Beach, fl usa - Saturday, February 10, 2007 7:52 AM CST
Susan,
I am so very happy and excited for you that you finally have become a mom again. You are such a good person (and by that I mean great, caring, wonderful, thoughtfull and sharing person I have ever known. You deserve to have everything you have ever wanted in life!!!! I think of you from time to time and the good ole days here in Ft. Lauderdale. I also think of your mom too when I pass by her neighborhood. She was always so very nice to me. I miss that you don't live around here anymore :( I hope you, Mark, Colton (and Jake's memories) have a great life together!!!! I will remember you always.
Janine Wilson <im_j9@yahoo.com>
Deefield Beach, FL 33442 - Thursday, February 1, 2007 7:03 PM CST
Dear Susan,
Hope you are doing o.k. You are in my thoughts and prayers.
Katrina
Katrina Gray
Delray Beach, - Sunday, January 28, 2007 0:40 AM CST
thinking of you
Robyn mom to Nicole and angel PJ
www.caringbridge.org/visit/nicole
rw
ottawa, on - Monday, January 1, 2007 8:40 AM CST
Hello Susan and Mark,
Just dropping to let you know I'm thinking of you and wishing you well. Colton must be getting big! Is he walking?
Well he has a very special Angel in his big brother Jake, whom
I think about often. Truly he had a simply beautiful smile.
You are in my prayers always, especially during the holidays.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
Boynton Beach, fl usa - Friday, December 15, 2006 3:58 PM CST
Hope you have a special Christmas with your little fellow and your "big" fellow, too. We miss Jakey Bear, speak of him regularly and are so enjoying the "Mr. Christmas" Christmas in Bethlehem Nativity set you gave us before you moved. It is right inside by the entry door and everyone comments on it when they come in the house. I turned on the music when I was wrapping presents the other day.
Thank you for bringing Jake into our lives and sharing him with us! We will never be the same since meeting him 8 years ago.
Warm Christmas Blessings to you!
Katrina
Katrina Gray <katrinagray3@yahoo.com>
Delray, - Thursday, December 14, 2006 8:14 PM CST
Happy 1st Birthday, Colton! Would love to see and update and pics of the birthday boy! Keeping Jake in our hearts always.
Susan and Scott Stein <hilltophedgies@msn.com>
Layton, UT - Tuesday, November 28, 2006 8:50 PM CST
I wanted to sign your GB on Jake's birthday, but the computer wouldn't cooperate. I wanted to tell you that I still pray for you and Jake every night. God bless you.
Debbie
Largo, FL - Friday, November 17, 2006 7:51 AM CST
Happy Birthday Jake. I still come to your site often to look at that beautiful face and to remember the much simpler times in life. Susan...I hope you are doing well. I would love an update on Colton.
Love...Marie <BaliTwins@aol.com>
Boca Raton, Fl - Thursday, November 16, 2006 10:01 PM CST
Wow Susan, it's been a long time! I've been off line for like a million years it seems. I've thought of you so many times in the past. I'm so glad that God sent you Colton, and so sad that ya'll had to go through such fear and worry, yet again. I will pray that nothing but fun filled excitment is in the future for you and family, you so deserve a GAINT SNICKERS BAR!!!!
Since we've talked all the years ago, now, Jeffery has had all together 3 tumors, still fighting w/all his might, and for the most part a regular 20 YEAR OLD MALE. This last round has changed him some though, he's much slower paced, and his skills are somewhat challenged now, but he still draws alot, and still reads and watches tv (man qualities), and when he can he is still aloud to play paintball. No driving aloud, but I let him drive in the yard some. We got him his Hot Dog Cart, not sure if you remember he wanted one of those, but we finally got it up and running. We go out now, when he feels up to it. He loves it. Life is soooo different now, we still have alot of fear, now specially since they have introduced Peds Care "kid hospice", we don't need them now, but they did get us a hosiptal bed, asap, and anything else we need they can get. Jeffery is still concidered a "kid" until he turns 21yrs. old, then we move on to adult docs, not looking forward to that. I remember that Jake was sent home, with 3/6mths prognosis, and I remember He lived for a long time after that, too. So, we just take everyday, just as slow as we need to, and try real hard to enjoy it. It's been great getting to read up on ya'll's family.
Peace and Prayers, to you all,
4/J's
Julie, Jeffery's mom <jsample2@comcast.net>
www.caringbridge.org/fl/jeffery, fl usa - Tuesday, November 14, 2006 7:57 PM CST
Hello, Susan
Wondering if you will be updating the site for us? We all miss hearing about the baby.
Hope you have a wonderful Thanksgiving. We think of your family and speak of Jake often.
Blessings,
Katrina
Katrina Gray
- Tuesday, November 14, 2006 1:17 PM CST
Thank you for your sacrifices for our freedoms. Freedom is NOT free!
I will praise the name of God with song; I will magnify him with thanksgiving. Psalm 69:30
May you & yours have a blessed Thanksgiving!
God Bless America,
Barb, John, Shawn, Shannon & Colleen
www.caringbridge.org/page/shannon
Barb
- Saturday, November 11, 2006 0:11 AM CST
thinking of you often...
Becky
Ann Arbor, MI - Tuesday, October 24, 2006 10:47 PM CDT
hey i dont know u and u dont know me but i think ur son jake is sooo cute! sorry about the lose i got the site from emily's becasue alex(her oldest brother) is in my class so ya. Just remember u are lucky to have givin birth to Jake!
p.s. the poem thing that was read at the funeral GREAT WORK! I LOVED IT!
please send an e-mail!
kristal <eagle_fo@yahoo.com>
mi us - Tuesday, October 24, 2006 7:30 PM CDT
Hello, Susan and Mark
We have been thinking of you and your precious baby boy who is almost 1 year old now. We would love to see you all sometime and also to hear how your journey has progressed in the 7 months since you updated the website. I remember how busy these days are and please know that you are loved and missed by the Gray family.
Blessings in Christ,
Katrina
Katrina Gray <katrinagray3@yahoo.com>
- Friday, October 20, 2006 11:47 AM CDT
Hi Susan, Mark and baby Colton. Just stoping by to say HI and see how you all are doing. Think of you all so often. Dylan sends his Love. Sharon and boys are doing well. Dylan's looking forward to a new voice activated computer. Counting the days now. But, I think we are in overtime!! They better hurry-up. Patience is not one of his solid suits. Love to you all. Barbara - D's Grandma.
Barbara Borders <HowdsLilKid@aol.com>
Port St. Lucie, FL USA - Wednesday, October 18, 2006 12:47 AM CDT
Just stopping by to say Im thinking about you! Hope everything is well! I bet Colton is HUGE now!
love and hugs,
Liz Shay <lshay90@aol.com>
mpls, mn usa - Tuesday, October 17, 2006 8:43 PM CDT
Congratulations on your new baby boy. I'm truly happy for you. My dad, daughter, and I will be visiting N.C. in November to see my grandmother. Hope to see Aunt Janie too.
Karen Davis (Mark's cousin...never met, but hear updates about you guys from Patricia and Cindy)
Karen Davis <kmdavis423@aol.com>
Valencia, CA 91355 - Monday, September 18, 2006 2:42 AM CDT
Hi susan, and mark, baby colton is so precious... and beautiful! how is he?? and new photos?? I think of jakey bear so much! he had this face and little spirit you just cant forget once you see him and read about him. Im blessed to be able to follow jakeys journey, thank you for sharing him. Im so glad you have colton to keep you going! he is truly heaven sent! thinking of you often,
Kim <dakk2222@netnitco.net>
IN - Sunday, September 10, 2006 9:32 AM CDT
Hello Susan and Mark....just dropping by to see if there were any new pics of baby Colton...always thinking of Jake....hugs.
Kathy
caringbridge.org/fl/david
Kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Friday, September 1, 2006 7:06 PM CDT
Hi precious family!!!
Just dropping in and sending you guys some love, hugs, and kisses!! Have a blessed day!!!!!
brenda willis <sunbury27@aol.com>
deltona, fla usa - Thursday, August 24, 2006 8:59 AM CDT
Hi, Susan and Mark
Zach was in bed the other night and we were snuggling, as usual. Without warning, he became teary-eyed thinking of Jake and was missing him. We all do.
We would love to have an update on Colton. What beautiful children God has given you in thost two sweet boys!
Blessings,
Katrina Gray
Delray Beach, - Sunday, August 13, 2006 10:47 PM CDT
Hi Susan and Mark-
Just dropping by to see Jakes beautiful face- his smile lights up, as does his baby brother Colton's. Wish you were closer, you might have gotten a kick out of seeing David perform at the Palm Beach Improv! He took comedy classes this summer and has performed a few times, also in Boca, but likes the Improv the best....my nerves.....he's very edgy...ahem. Anyway, I do have a video clip of his first adult stand-up night....I can email it if you want. Hoping you are well....huggggsssss
Kathy
caringbridge.org/fl/david
Kathy <JOY2JAK@ADELPHIA.NET>
Boynton Beach, FL USA - Friday, August 4, 2006 6:44 PM CDT
Hi Guys,
Just sitting here thinking of you and going thru all the CB pages that I follow. I hope little Master Colton is keeping you both very busy :-) Keep well,
hugs,
Tracey xoxo HAB <traceyhewison@shaw.ca>
Calgary , - Sunday, July 30, 2006 11:17 PM CDT
Hi Susan- It's been a while since we've chatted. I am pleased to see your son is doing well. I realize, as you do, every child is so different and individually they all need something a little different. Felicia is doing well. She is cancer free, 5 1/2 years old and starting Kindergarden homeschool soon. I would love to chat on the phone.
Lisa Guajardo <keepdancing@adelphia.net>
Ft. Lauderdale, Fl - Saturday, July 29, 2006 2:35 PM CDT
Thoughts and prayers with you and yor family.
Jennifer Shaw Friends of Angel Ryan Brown <tjdbcshaw@yahoo.com>
Clarksville, TN US - Thursday, July 20, 2006 6:24 PM CDT
Thinking of you!
Hope all is going well!
♥ liz
liz shay <lshay90@aol.com>
mpls, mn usa - Monday, July 17, 2006 10:30 PM CDT
Hi Susan and Mark,
It's late, was just sitting here, thinking about Jake and wondering how Colton is doing and how you are all doing also. I am sure that Colton continues to grow and change and delight you with each day that comes...and Jake is watching over all of you from his special place in Heaven. Do you think that one day, Jake will teach Colton how to be an escape artist also? (I always remember when Jakey made it out of the house and how funny he thought it was to trick you, what a rascal!) Have a wonderful summer....
love Tracey xo
Tracey , Steve, Quinn and Cally xoxo HAB <traceyhewison@shaw.ca>
Calgary, - Thursday, July 13, 2006 2:13 AM CDT
Hey Mark, Susan, and baby Colt! It's about 2am and I'm working on the computer. Just wanted to look at Jake's site...was thinking of you all today!
love you much!
Robin Zinsmeister <rogriffin@albemarle.edu>
Elizabeth City, NC - Thursday, July 13, 2006 0:18 AM CDT
Was thinking of you today....
What a beautiful baby!!!!
Crystal (mother of Angel Ray-Anne) www.caringbridge.org/ca/rayanne <crystal2175@yahoo.com>
Portland, OR USA - Monday, July 10, 2006 3:44 PM CDT
Thinking of you all...remembering Jakey. Wishing you a Happy 4th and sending prayers your way...
kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Tuesday, July 4, 2006 8:58 PM CDT
Blessed & safe hoilday & summer to you & yours.
God Bless America,
Barb, John, Shawn, Shannon & Colleen
www.caringbridge.org/page/shannon
Barb
- Friday, June 23, 2006 1:09 PM CDT
Hello, Mark and Susan
I hope you are doing well and that Mark had a special Father's Day. I would love to see some new pictures of baby Colton. How is he recovering?
After almost 3 months of unplanned and necessary rennovations, we are back in our house. We did not have access to a computer where we were staying, but am thankful to be finally home!
Loads of love and prayers for your family,
Katrina
Katrina Gray <katrinagray3@yahoo.com>
- Wednesday, June 21, 2006 4:23 PM CDT
Happy Father's day, Mark!
Susan and Scott Stein <hilltophedgies@msn.com>
Layton, ut - Sunday, June 18, 2006 5:46 PM CDT
Hugs and oodles of prayers!
Love
Mary, Mike Slade and the kids <mar-e@rogers.com>
Guelph, Ontario, Canada - Tuesday, June 13, 2006 9:05 AM CDT
Thinking of you all and sending my best. How is that beautiful baby Colton doing? Do you have more pics? Of course you do....but can you scan them??? I know I depend on others for that!! Looking forward to seeing more pictures. Remebering Jake always.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Monday, June 12, 2006 4:43 PM CDT
Colton is a beautiful baby! Hope he continues to heal and recover and to do well. Have a great Memorial Day weekend.
Kathy H.
T.O., CA - Saturday, May 27, 2006 10:53 AM CDT
We remember the soldiers who fought for our country.
Thank you to our troops & their families! Happy & Safe Memorial Day to ALL!
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Barb
- Friday, May 26, 2006 5:38 PM CDT
Happy Mother's Day, Susan.
Hope that Coltan is doing well.
Susan and Scott Stein <hilltophedgies@msn.com>
Layton, UT - Sunday, May 14, 2006 2:09 PM CDT
Thinking of you this Mother's Day, Susan.
With love, Tracey xo <traceyhewison@shaw.ca>
Calgary , - Sunday, May 14, 2006 1:53 PM CDT
Happy Mother's Day Susan. Thinking of you.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton, fl usa - Saturday, May 13, 2006 1:22 PM CDT
LETTING YOU KNOW THAT YOUR THOUGHT OF ON MOTHER'S DAY.KEEPING YOU IN MY THOUGHTS AND IN MY PRAYER'S ALWAYS.
A Mother's Day Wish From Heaven
Dear Mr. Hallmark,
I am writing to you from heaven, and though it must appear
A rather strange idea, I see everything from here.
I just popped in to visit, your stores to find a card
A card of love for my mother, as this day for her is hard.
There must be some mistake I thought, every card you could imagine
Except I could not find a card, from a child who lives in heaven.
She is still a mother too, no matter where I reside
I had to leave, she understands, but oh the tears she’s cried.
I thought that if I wrote you, that you would come to know
That though I live in heaven now, I still love my mother so.
She talks with me, and dreams with me; we still share laughter too,
Memories our way of speaking now, would you see what you could do?
My mother carries me in her heart, her tears she hides from sight.
She writes poems to honor me, sometimes far into the night
She plants flowers in my garden, there my living memory dwells
She writes to other grieving parents, trying to ease their pain as well.
So you see Mr. Hallmark, though I no longer live on earth
I must find a way, to remind her of her wondrous worth
She needs to be honored, and remembered too
Just as the children of earth will do.
Thank you Mr. Hallmark, I know you’ll do your best
I have done all I can do; to you I’ll leave the rest.
Find a way to tell her, how much she means to me
Until I can do it for myself, when she joins me in eternity.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON ,ALBERTA
, - Saturday, May 13, 2006 0:17 AM CDT
Praying for you, Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Barb
- Tuesday, May 9, 2006 1:40 PM CDT
I haven't checked your web site in a long time, so I was so very thankful to our Lord, hearing that you and Mark have been blessed with a second angel. Jake's life touched so many people, even strangers like myself. It's good to see that baby Colton has piercing eyes, just like his big brother. I'm glad that you keep updating, God is reaching alot of people through you. God bless you and your family.
Tina Gray <pwomangray@aol.com>
Ocean Ridge, Fl - Thursday, April 20, 2006 7:03 PM CDT
thinking about you. The baby is beautiful...I know Jake is watching over you all. Know I am always thinking about you all.
Love Teresa(mommy to the greatest love of my life-Marcus-forever in my aching heart)
www.caringbridge.org/mn/markie
Teresa <trrn@sympatico.ca>
Toronto, On Canada - Friday, April 14, 2006 10:50 AM CDT
Wishing you a special Easter with baby Colton. You are in our thoughts, as Jakey Bear surely is.
Tracey and family xoxo HAB <traceyhewison@shaw.ca>
Calgary , - Thursday, April 13, 2006 8:59 PM CDT
Dear Susan: I was so glad to hear from you. Colton is adorable. I'm not sure if you stop by Give kids the world anymore, but I work there now and if you ever do, please ask for me. Maybe we could finally meet. With love Helene,
www.caringbridge.org/nc/nicholascastillo
Helene <helenec@gktw.org>
St. Cloudq, FL - Wednesday, April 12, 2006 11:50 AM CDT
I am a longtime reader, and wanted to let you know that I walked in Relay for Life last weekend in honor of Jake and many other angels. I made a special luminaria for Jake, which I could see each time I made another lap around the track. It was really special. I'm so grateful to know him through this site.
Becky
Ann Arbor, MI - Tuesday, April 11, 2006 7:46 PM CDT
Colton is just adorable! Congrats! God has really blessed you.
Regina Martin <jrmjmartin@valkyrie.net>
Lakeville , Ohio USA - Tuesday, April 11, 2006 5:25 PM CDT
Thank you so much for everything you did to make our vacation wonderful! I hope colton is doing well..and that he doesn't miss our attention too much..haha. Well i'm sure we'll talk soon- gotta email some pictures back and forth. Love always,
kristina amrani <crystalina2315@yahoo.com>
minneapolis, mn USA - Monday, April 10, 2006 10:11 PM CDT
Just wanted you to know that we lit candles for Jakey this weekend and said special prayers for your family.
Susan and Scott <hilltophedgies@msn.com>
Layton, UT - Monday, April 10, 2006 8:04 PM CDT
Thank God Colt is doing fine and I am sure the thought of the surgery scared you all and thankfully thats in the past and he's fine. Pretty soon the bone will be regrown all the way already. Wishing you guys all the best, I know theres a huge empty spot in your house and your hearts for Jake
Chris Gooch's mom Share the Love <chrisrusso_@hotmail.com>
- Sunday, April 9, 2006 9:49 PM CDT
Susan and Mark, seeing Susan the other night reminded me of the joy Jake brought to a room when he entered it, and the sorrow I still feel when I think of his loss. Know that you and "both" your boys are in my thoughts and prayers this weekend. I will always treasure my memories of Jakey Bear!
Teri Moran <cmoran5591@aol.com>
Jupier, FL - Sunday, April 9, 2006 9:28 PM CDT
Thinkning of you all day today. God be with you.
Kasey Gunde <topgund@aol.com>
Mount Holly, NC US - Saturday, April 8, 2006 10:54 PM CDT
HI,
Thinking about you all today. Hugs to all of you and your lovely houseguests!!!!
Roy and Donna
Cheyenne's Proud Mommy and Daddy
Roy Fiveash <rfiveash@wcc.net>
San Angelo, Tx - Saturday, April 8, 2006 8:54 PM CDT
We are thinking about you this weekend... remembering Jake and the beauty he brought to all of us.
Jake created so many beautiful things for the rest of us - new friendships, self-awareness, how to appreciate and share massive love, the spirit to be and do more as a person, the lessons to parents to nuture and love their kids better - all of these things are a legacy that will NEVER die. Jake touched people is very real ways... in some cases people that he never even met! Those elements of life and the memories of Jakey Bear himself are with us forever.
We can only wish that Colton is a tue comfort to you this week. You have so many gifts to share with your second son... including the lessons we all learned from his older brother - his shooting star.
Love you guys.
Todd & Mary Kay <mk@Mkminc.com>
Lake Worth, FL - Friday, April 7, 2006 3:47 PM CDT
THE JELLY BEAN PRAYER
Red is for the blood He gave.
Yellow is for His son so bright.
Black is for the sins we made.
Purple is for His hours of sorrow.
Green is for the grass He made.
Orange is for the moon at night.
White is for the grace He gave.
Pink is for our new tomorrow.
A bag full of jellybeans,
Colorful & sweet,
Is a prayer, Is a promise, Is a small treat.
Remember Jesus when you eat the jellybeans.
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Barb
- Wednesday, April 5, 2006 7:05 PM CDT
Hi Susan and Mark,
Thank you for sharing your picture of Colton. He is such a precious boy! What joy he must bring to you both.
I wanted to let you all know that I am thinking about you, Colton and your precious Jakey Bear this week. Jake captured a special place in my heart the moment I first read your journal entries,and took one look at his pictures. I will always remember him and all of the other children.
Love,
Diana, Mother of Angel Katherine
Diana Cross, http://www.caringbridge.org/tx/katherinecross/ <diana@houston.rr.com>
Houston, TX - Monday, April 3, 2006 6:57 PM CDT
My thoughts and prayers are with all of you this week.
Sarah
- Monday, April 3, 2006 2:34 PM CDT
Hi Susan, I just emailed my cousin in NJ (another Jakey fan) and she remarked that Colton "has jakey's mischevious grin/eyes". I agree.
April from NJ and Tess from CA
Tess Baker <tessbaker@sbcglobal.net>
Fresno, CA - Saturday, April 1, 2006 10:28 AM CST
Susan and Mark, Colton is a beauty! What a face!!! So glad your friend posted his photo. Thinking of you.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Saturday, April 1, 2006 10:05 AM CST
Susan, Colton is a doll! I am so glad he is doing so great. Thank you for sharing the photo.
~Tess
Tess Baker <tessbaker@sbcglobal.net>
Fresno, CA - Saturday, April 1, 2006 9:23 AM CST
What a beautiful baby! I'm so happy for you and I think Colton is a very lucky little boy.
Debbie Davis
Largo, FL - Saturday, April 1, 2006 7:57 AM CST
This is my first visit at your website. What a beautiful baby you have. Colten is so lucky to have loving parents. All of you are in my prayers and I hope Colten has a fast recovery. Take care and God Bless!
Mary F. <mfeldpau@edzone.net>
Mi USA - Friday, March 31, 2006 5:39 PM CST
Finally a picture of sweet Colton!!!!! He has such a great smile. I hope he is giving you lots of smiles today.
Ginger Bliss <gingerbliss@earthlink.net>
Palm City, FL USA - Friday, March 31, 2006 2:56 PM CST
Susan, you make the most beautiful boys. I will be sure to stop in and let Cam's family know they are in our prayers, I am so sorry another angel is preparing to take flight.
Hugs and love,
Tracey xoxo HAB <traceyhewison@shaw.ca>
Calgary, - Friday, March 31, 2006 1:50 AM CST
I had to sign again; I am drawn back to Colton's sweet face again:) He has the most amazing expression I have seen. He seems to talk with his eyes and he's so alert! I can imagine how you must eat him up!!
yael <imyael@gmail.com>
Boca Raton , FL USA - Thursday, March 30, 2006 5:56 PM CST
Colton is just beautiful!!! I love the look on his face in that picture! Praying for all the best for you all.
cathy rusyniak <garbmike@optonline.net>
Rockaway, NJ - Thursday, March 30, 2006 3:17 PM CST
Colton is BEAUTIFUL! He has a real twinkle in his eyes that seems to say, Yeah, I'll give you a run for your money very soon!! And I'm sure he will. He's beautiful and so sweet to look at; Thanks so much for sharing the photo. Enjoy him as I am sure you are doing!!
Yael <imyael@gmail.com>
Boca Raton , FL USA - Thursday, March 30, 2006 11:42 AM CST
So glad Colton is healing and doing so well.....still waiting for those pictures...:D hint, hint. You guys enjoy your visit with Julie and the her children!! I bet they are so excited to see beautiful Colton! Sending warm thoughts and cyber hugs...
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton, fl usa - Wednesday, March 29, 2006 5:19 AM CST
Please know that each of you are in my thoughts and prayers....
The Prayer Bears Website
Mary Mabe <<mmabe63@yahoo.com>>
Coeburn, va usa - Tuesday, March 28, 2006 9:22 AM CST
Susan and Mark,
I can't believe it has been since Christmas that I have been here. And i missed so much. I am so relieved about the surgery and that your 'little man' is on the mend. i am also waiting for pictures. i still think of you guys often.
lisa www.caringbridge.org/ar/savannah <littleredlch@yahoo.com>
- Monday, March 27, 2006 12:24 AM CST
Susan-
What a wonderful update!
6 short days... can't wait to give Colton a kiss in person!!!
With love,
Julie-Maddie's mom www.caringbridge.org/mn/maddie
Julie Dornisch <juliedornisch@yahoo.com>
Mpls., MN - Friday, March 24, 2006 11:03 AM CST
Susan,
Thank you so much for the update...Praise God for the wonderful news and we rejoice with you!
Love in Christ,
Katrina
Katrina Gray <katrinagray3@yahoo.com>
- Thursday, March 23, 2006 11:15 PM CST
Susan and Colton,
We had a great visit with you yesterday. Thank you for having us. Colton you are the cutest baby. Can't wait to see you again soon.
www.caringbridge.org/fl/zacharyfinestone
The Finestone <srfinestone@hotmail.com>
Jensen Beach, FL USA - Saturday, March 18, 2006 6:48 AM CST
Hi Guys! Hoping Colton is healing fast and all is well! Cannot wait to see pictures of the little man!!! (Hint, hint!.....)
Sending you our best and letting you know we're thinking of you!
Kathy & David
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Friday, March 17, 2006 1:00 PM CST
Hi,
It is great to hear that after ALL of that things are going well. I will be praying you guys continually,
Brittany Dahlen- One Maddie Paguyo's friends <brittanydahlen@hotmail.com>
Minneapolis, MN - Thursday, March 16, 2006 9:47 PM CST
Hello Mark, Susan, Colton, LaLa and Jake,
Zach and I look forward to our visit tomorrow. We miss you guys.
Your Friends,
Scott, Rebecca and Zachary
www.caringbridge.org/fl/zacharyfinestone
Scott, Rebecca and Zachary Finestone <srfinestone@hotmail.com>
Jensen Beach, FL USA - Thursday, March 16, 2006 6:31 PM CST
Glad to hear Colton is doing well! Hope you guys are having tons of fun!
Mary <MaryKitchen@TumbleweedFoundation.org>
- Wednesday, March 15, 2006 9:42 AM CST
Just stopping back to see that preciopus face of jakey bear! that must by far be one of the most precious pictures. i was reading over old journal history and of course fell in Love again with jakey! I cant believe he would be 7.5 yrs old. that is just hard to comprehend! I know colton is just as precious and beautiful, and I think Jakey Loves him from heaven! What a blessing these little guys are. Im so so happy you have colton and he is doing good and will grow up to be something wonderful! and he will know how special his big brother jake was! and can read that even 2 yrs later People still miss and love that little bear! he was my favorite little boy on CB . I have 3 boys of my own so maybe im partial to them! Susan I know you have been such an inspiration to so many here. and Marks words and things he has written made me cry all over again. It was like it was yesterday. Some people are afraid to mention someone to there family when there gone. But I know you Love to still hear about jakey! and He will never be gone from anyones heart or memory! I loved that little guy. thank you so much for shareing him . and Now little colton! Your just one of our favorite families and Just love knowing your cuddling up to some warm baby hugs! enjoy every min! mine our getting so big!!! 14,11 5
Kim <dakk2222@netnitco.net>
IN - Tuesday, March 14, 2006 9:33 PM CST
Susan, Mark I am so thankful colton is doing well and this is behind him! Im praying for a quick recovery! his hair will cover his scar in time! And if he is like jakey bear it wouldnt matter if he had one down the middle of his face! he is beautiful im sure! what a blessing to have another precious boy to Love and Hold! I think Jakey wispered in GOds ear! Things have to get better now you have lived the worst! hugs to you all!
Kim <dakk2222@netnitco.net>
IN - Monday, March 13, 2006 10:22 PM CST
Glad to hear the surgery went well! Hope everything continues to go that way for you guys! I can't wait to see you all again, its coming up really quick. YES!
love hugs and prayers!
♥ Liz Shay <lshay90@aol.com>
mpls, mn usa - Sunday, March 12, 2006 11:04 PM CST
I am so glad to read baby Colton came thru surgery well. Prayers for a continued and speedy recovery.
I hope we can all see a picture of your dear Colton soon, hopefully one can be squeezed in without having to remove any of the precious Jakey Bear photos.
I love the picture of Jake with his Dad on the pier. He looks so secure, so happy and so loved.
(((hugs)))
Rita B <thegr8bolli@yahoo.com>
Woodbridge, Va USA - Thursday, March 9, 2006 11:30 PM CST
Hi Colton & family!
Found your web site through Julianna's. Glad to hear you are home from the hospital and on the mend. Sending positive thoughts and good wishes your way!
http://www2.caringbridge.org/canada/shaunam/
Karen, Graham, Shauna and Jenna McLean
Watford, Ont Canada - Thursday, March 9, 2006 9:52 AM CST
Susan, so glad to hear Colton is doing well!!!!! Take care of yourself too, I can't imagine how you must feel.
Carol Mack (Mom2Angelz Meghan & Taylor) www.caringbridge.org/fl/meghansjourney <tmcmbm@aol.com>
Titusville, FL USA - Wednesday, March 8, 2006 5:18 PM CST
Susan oh my gosh, I have been thinking of you and jake lately and thought I would look check out his web page - I can not believe what you, mark and colton have been going through!! I am so happy and thankfull you all are OK!! You guys are so amazing, strong and brave. Please know I think of you all often and wish we still lived close by. Your friend - Karen Cook
Karen Cook <kkouhi67@msn.com>
Yardely, PA USA - Tuesday, March 7, 2006 8:01 PM CST
Susan, Mark, Colton and your angel bear, Jake...
Thank God that this week is over. We love you and know that you are all going to feel so much better now that this is behind you. We are so terribly sorry that you ever had to go through it. Colton, little man, you are a great healer. Now from here on in you are not allowed even a skinned knee!
We love you guys!
Todd, MK, Ash, Blake, Baby Will www.caringbridge.com/fl/willson <mk@Mkminc.com>
Lake Worth, - Monday, March 6, 2006 10:12 PM CST
wow, to be here again..but, after reading about the surgery on Julianna;'s page, and of course knowing you as an old BT friend, here I am so happy to read it is something simple (haha, that sick BT humor about brain surgery), and most important that you all are home and doing well. Praise God..
We had heard of COltons birth on the PBT list, and now am so glad to know he is well. Love to you all,
Mary Alice Dorschel, mom of Lizzie, now 13, germinoma BT <jay.dorschel@verizon.net>
Suffolk, va usa - Monday, March 6, 2006 3:01 PM CST
Welcome home!! I'm glad to hear things went relatively smoothly and you are at home with your sweet boy. I will continue to pray that all goes well and this chapter of your lives can be closed quickly!
Kendra Simpson <ksbusyboys@bellsouth.net>
Asheville, NC - Monday, March 6, 2006 2:46 PM CST
Susan - I am so glad to hear that Colton made it through his surgery, and is well on his way to recovery. Any type of medical procedure for our children after a loss can bring us back-tracking through difficult emotional ground - hospitals being a particularly difficult place to visit again, and all that goes with it.
How nice it will be to finally put this surgery behind you and be able to get on with the business of simply enjoying your little guy. Colton and your family continue to be in my thoughts and prayers, as does his forever big brother, Jake.
Shayleen and Angel Cameryn
Campbell River, BC Canada - Monday, March 6, 2006 8:32 AM CST
So glad the surgery went so well! And on top of it, you guys are HOME!!1 We all know that's a wonderful feeling. Praying Colton's ears heal fast and his surgery healing proceeds without issues!! Hugs and well thoughts...
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton, fl usa - Monday, March 6, 2006 5:22 AM CST
Susan-
So glad the surgery went well and you all are at home !!
I will keep up the prayers for a speedy recovery.
hugs-
Alison
Mom to Angel Alexandria
www.caringbridge/org/page/alexandriasangels
www.alexandriasangels.com
alison haddock <alisonhaddock@charter.net>
O Fallon, MO - Sunday, March 5, 2006 10:46 PM CST
I read about Colt on Julianna's caringbridge page. I wanted to write and tell you our daughter, Cherry, also had sagittal craniosynostosis. She was diagnosed at 9 months old, her stupid doctor knew earlier but was "afraid" to tell us because he thought it might offend us. What an idiot. Anyway, Cherry had hers corrected at 9 1/2 months of age and because it was so late it didn't change her skull shape much, although they did broaden her forhead a little and that part looks better. Well guess what, Cherry later developed leukemia at 20 months old! We have a caringbridge page for her also, and you can see her at www.caringbridge.org/tx/cherry . She is 4-years post diagnosis and doing great now. Yes, it is REALLY tough to have an infant go through surgery like this, but thank goodness they don't remember a thing. You guys have been so much, wish I had the words to comfort. Cherry had a quick recover from the cranio surgery (which was performed in Memphis) and I hope your little guy will too!
Stephanie Dzur <sdzur@yahoo.com>
albuquerque, nm - Sunday, March 5, 2006 9:30 PM CST
I am so glad you guys are home!!!! It is great to hear such terrific news. I will continue to pray for Colton's recovery.
Love,
Andrea Brown-Mommy to Ryan and Elizabeth
Andrea Brown Ryans Story <andrea_brown03@yahoo.com>
Fort Campbell, KY USA - Sunday, March 5, 2006 3:54 PM CST
Hurray! Colton is home and I know he will continue to do well, with such an attentive Mommy and Daddy to take care of him, and a big Brother Bear in Heaven, watching over him. :-) I can't imagine what an incredibly stressful time it was for you all and the ride home must have been so scary, but now you are home and I hope, feeling so much better. Especially little Colt. Big hugs and best wishes,
Tracey and clan xoxo HAB <traceyhewison@shaw.ca>
Calgary , - Sunday, March 5, 2006 3:40 PM CST
Dear Susan,
Zach and I read your beautiful update and we had tears of joy and compassion for you all as we read your words.
May God continue to give you peace and grace as you continue to walk by faith!
Praying there will be a different method of treating the ear infections so it will be easier on you all!
Love in Christ,
Katrina
Katrina Gray
- Sunday, March 5, 2006 2:59 PM CST
Susan and family
It has been awhile since I have emailed, but I know you know that I think about you often. I think about Jake often(especially on our birthday together Nov 16th)Susan I am so happy for you and Mark to have Colt in your lives. I know you are going through alot right now and I am praying so hard for good things and good health. I have been feeling the need to have another child now also but I am scared. You give me hope... I will hold you all close to my heart my friend. Much love to you all
Teresa (mommy to the greatest love of my life-Marcus-forever in my aching heart)
www.caringbridg.org/mn/markie
Teresa <trrn@sympatico.ca>
Toronto, On Canada - Sunday, March 5, 2006 10:19 AM CST
Hi, I got to your site through Julianna Banana's, and I just wanted to let you know that there is a little girl in our church (well, she's not so little anymore - she's 15) who also had this when she was a baby, and she is perfectly normal, healthy, smart and beautiful now! She is an active athlete and cheerleader. And while her parents were also scared to death and hated the surgeries and all that, the outcome was great! We'll be praying for y'all!
Love,
Alayna Brooks <srafbrooks@yahoo.com>
Denver City, TX - Sunday, March 5, 2006 5:29 AM CST
Were keeping Colton in our prays!
Jakey is watching over him with a smile and protection!
Meghan & Nater Gapa www.caringbridge.org/ny/naters_page or My NEW site http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=nathanielgapa <gaphouse@yahoo.com>
- Saturday, March 4, 2006 10:33 PM CST
Were keeping Colton in our prays!
Jakey is watching over him with a smile and protection!
Meghan & Nater Gapa www.caringbridge.org/ny/naters_page or My NEW site http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=nathanielgapa <gaphouse@yahoo.com>
- Saturday, March 4, 2006 10:33 PM CST
Susan and Mark- I am so sorry to hear what little Colton is going through. Plain and simple it just sucks. Colton will be in our prayers.
Diane Mathis (Mitchell's mom) <Stubby3620@aol.com>
now Hickory (was Boynton Beach), NC - Saturday, March 4, 2006 8:16 PM CST
Keeping Colton in my prayers and praying the surgery went well. Susan and Mark I know it must be so surreal to be back at Miami Children's...I just know Big Brother Jake is watching closely over his baby brother...as well as his Grandmother. God Bless you two....
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Saturday, March 4, 2006 8:01 PM CST
Praying that no news about Colton's surgery is good news. Please update when you have a chance so we know how Colton is doing. I'm continuing to keep your family in my thoughts and prayers!
Lisa
Lynnwood, WA - Saturday, March 4, 2006 12:59 AM CST
Praying for you all, especially Sweet Baby Colton Jake. I Hope all things go just as planned, and Im sure they will since a very special Angel is watching over his little brother! My thoughts are prayers are with you all. Take care...
Amy <athomas@hansoncomputer.com>
Huntington Beach, CA - Friday, March 3, 2006 10:45 PM CST
Your family has been on my mind a lot the last few days. I'm praying that all is well with Colton, and he's back to normal in no time.
Kendra Simpson <ksbusyboys@bellsouth.net>
Asheville, NC - Friday, March 3, 2006 2:31 PM CST
I found your site through Julianna. We lost our beloved Tyler Wilson, January 28, 2004 who also loved Thomas the train. It's not fair for parents to lose their children or for you to go through this twice. I wrap my arms around you from Illinois, cry as I write this knowing how I would feel if it was my own children. It's not right to question God's ways but right now it's just not fair. Good luck, I hope surgery went well and may your family find some peace and happiness soon. Take care and I'll give all 3 of my children an extra hug this evening for your children. God Bless!
Barb Thomas <Halnbrit@yahoo.com>
Mattoon, IL USA - Friday, March 3, 2006 1:51 PM CST
I found your site through Julianna. We lost our beloved Tyler Wilson, January 28, 2004 who also loved Thomas the train. It's not fair for parents to lose their children or for you to go through this twice. I wrap my arms around you from Illinois, cry as I write this knowing how I would feel if it was my own children. It's not right to question God's ways but right now it's just not fair. Good luck, I hope surgery went well and may your family find some peace and happiness soon. Take care and I'll give all 3 of my children an extra hug this evening for your children. God Bless!
Barb Thomas <Halnbrit@yahoo.com>
Mattoon, IL USA - Friday, March 3, 2006 1:50 PM CST
I am your faithful prayer warrior... Hoping the surgery goes well and that God guides the surgeons hands..
Blessings,
Marjie <jmr@mahaska.org>
Oskaloosa, IA USA - Friday, March 3, 2006 9:20 AM CST
I just came off of Juliannabanana's site. I have to say that I agree with her about being awestruck with Jake's cuteness. The first time I checked on him I thought he was the sweetest looking child with such loving eyes. I was instantly attached and checked your website everyday. I am sure that he will be looking down on his baby brother Colton with love and protection. You will be in our prayers!!!
Dottie
Philadelphia <cancersucks@aol.com>
- Friday, March 3, 2006 8:33 AM CST
Hello Griffin family---I was linked from Julianna B's site...and just spent an hour reading about your little men. My prayers are with you all as you begin a journey down a new road at the hospital...my little man (Griffin) was dx with A.L.L. in 11/04...and he favorite thing in the whole wide world is Thomas the Train & friends!! In fact, we've officially named him the biggest train freak in the world---it is what makes him happy and smile...and it is what gets him through each an every day! Sending you thoughts of strength and peace from NY. Love, the Della Penna family www.caringbridge.org/ny/griffin
Ellen, Matt, Allison & Griffin Della Penna <emdellapenna@genesee.edu>
Batavia, NY usa - Friday, March 3, 2006 8:32 AM CST
"Cause tonights the night the world begins again...so take these prayer and sing out loud. Just a chance we'll find better days." Believe that these better days are out there we're praying for you!
Rachel C. <lilcrazymamac@hotmail.com>
Bedford, Tx - Thursday, March 2, 2006 10:54 PM CST
Sending prayers to you from CA!
XXOO, Marey, Cali Ali's Mom
Marey <kteachermom@hotmail.com>
- Thursday, March 2, 2006 10:19 PM CST
Oh my gosh Susan......I just read the news and I cannot tell you how sorry I am that sweet Colton has to go through such a thing and that his sweet parents must endure this nightmare of surgery. I am praying that things go well, and for a speedy recovery. I know that he has a very special Angel big brother always there to watch over him.
Thinking of you and praying !!!!!
love and hugs-
Alison
mom to Angel Alexandria
www.caringbridge.org/page/alexandriasangels
alison haddock <alisonhaddock@charter.net>
O Fallon, MO - Thursday, March 2, 2006 8:36 PM CST
Praying for smooth sailing for Colton's surgery. I kow Jake will be right beside his baby brother - making sure the surgeon takes good care of him!
Love and Prayers
Mary <MaryKitchen@TumbleweedFoundation.org>
- Thursday, March 2, 2006 7:54 PM CST
Bless your hearts. I just wanted to add that I've worked with a couple of preschoolers who had gone through that surgery as babies and they were both doing wonderfully! God bless you and your family.
Amy (speech path) <davysmama@comcast.net>
Sterling Hts, MI - Thursday, March 2, 2006 6:47 PM CST
Just adding my voice to the many out here in cyberspace praying for your little guy...
Stay strong...
With Love and Prayers,
Sherrill
Sherrill Jones <Sherrill@probaglady.com>
"The Mile High City", CO USA - Thursday, March 2, 2006 6:01 PM CST
Hi,
So sorry to hear that baby Colton is ill. What a shock. I hope that you're doing as well as you can be and that he sails through the surgery!
Stay Strong
Cat
Cat
England - Thursday, March 2, 2006 5:49 PM CST
Coming here from Juliana Banana's site, and just praying so hard that sweet baby Colton will have God's hands guiding the surgeons during his surgery. He already, obviously, has the very best parents that God could find...! We are all...
In His hands..
Pam <p_dought@bellsouth.net>
Powder Springs, GA USA - Thursday, March 2, 2006 5:25 PM CST
I heard about you and your sweet new baby from Julianna Banana's site. Just letting you know Colton will be in my thoughts and prayers.
Susan <susan0500@sbcglobal.net>
Austin, TX - Thursday, March 2, 2006 4:44 PM CST
Praying that everying went well. When you have a chance, let us know how baby Colton is doing.
We love you guys,
Katrina
Katrina Gray
- Thursday, March 2, 2006 4:11 PM CST
Keeping you in my thoughts and prayers.
Briana Roehling
Pflugerville, TX - Thursday, March 2, 2006 12:48 AM CST
My thoughts and prayers are with you.
I found your site through Julianna Banana's and I wanted to let you know that there are tons of prayers out there for Colton and his amazingly strong parents too. I can't even imagine the fear you felt having to go back to the hospital and when you wrote that you wanted to take baby Colton and run away I could feel your fear. I wish I could say something inspirational to help you through this time, but I'm at a loss for words. (No small feat if you know me!) Just know that for every person that stops at this guest book and adds and entry there are at least 2 people that don't but they will still send prayers. And of course baby Colton has Jake watching from Heaven...
Janet Turner <leaf_avfans@mts.net>
Winnipeg, Canada - Thursday, March 2, 2006 12:25 AM CST
Susan, It was so good to talk to you and please know that I am holding you and your family close in prayers for sweet little Colton. I know he has the best Big Brother Angel anyone could have watching over him. Looking forward to awesome news that Colton is out of surgery and doing GREAT! Hugs to you.
Carol Mack (Mom2Angelz Meghan & Taylor) www.caringbridge.org/fl/meghansjourney <tmcmbm@aol.com (ELM/Everybody Loves Meghan)>
Titusville, FL USA - Thursday, March 2, 2006 12:11 AM CST
Of course prayers and best wishes are storming across the country to Colton and you as well.
Perfect health for your baby is on its way!!
lynette <lynies1@aol.com>
aloha, or usa - Thursday, March 2, 2006 10:59 AM CST
Dear Susan and Mark,
I am very moved by your lives. I am so sorry for all the pain you have gone through. I have always been told that "God only gives you what you can carry". He must think you are both very strong indivduals. You have a beautiful family and one day very soon you will be renunited with glowing hugs and smiles from your little boy. I have gained a new appreciation for my own children, and pray that life won't get so busy that I take their health for granted.
I thank you for that and wish you all Gods joy as you journey through your days.
Mary
Mary
Atlanta, GA USA - Thursday, March 2, 2006 7:02 AM CST
Jake was one of my first adopted Caringbridge kids.. and I've never forgotten his shining eyes and smile.. You are in our thoughts and prayers tonight.. Colton is one lucky guy to have such wonderful parents.. please keep us updated on how he is doing..
M Burns
Albany, NY - Thursday, March 2, 2006 6:54 AM CST
Sending LOTS of love, Prayers, Strength and Blessings your way!!!
We stop by daily to see how your family is doing.
God Bless and hope to hear from you soon!
Take care and GOD BLESS!!!!
Janis Goehner <JanisGoehner@Hotmail.com>
Lakeville, MN USA - Tuesday, February 28, 2006 9:08 PM CST
Susan and mark, I was thinking of youa ll and jakey bear and colton today and came by to say Hello... to my complete suprise i read the news of colton. I will be praying for him. I have heard of this condition. Its so good it was cought so early on. sometimes its not with devistating affects. he should be perfect after all this. i know its hard not to worry. I bet he is so so beautiful! and growing is a great sign! Hugs!
Kim <dakk2222@netnitco.net>
In - Tuesday, February 28, 2006 11:32 AM CST
Susan and Mark,
Baby Colton will be in our prayers for a successful surgery and smooth sailing recovery. The doctors have done this many times before and they are going to take the best care of Colton. I am so sorry you all have to go through this, we are sending our very best energy your way, everything is going to work out :-) Big, huge, hugs!!
love Tracey xoxo
Tracey xo HAB <traceyhewison@shaw.ca>
Calgary , - Tuesday, February 28, 2006 10:50 AM CST
Mark and Susan,
Sigh .... praying for strength and guidance to get you over this hurdle. Many hugs your way ....
The Boaks <cabincreek@core.com>
Fowler, MI - Tuesday, February 28, 2006 7:51 AM CST
Dear Susan and Mark,
Keeping baby Colt in my prayers. Will you go to Miami Children's? You have all been through so much...I still beleive Jakey is looking after his little brother...prayers and much love to you.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Monday, February 27, 2006 6:50 PM CST
I have a friend who's son had the same thing. He was treat at Children's Hospital of Philadelphia and is now a handsome 4 yr old. I will keep you and your family in my prayers.
Dottie
Philadelphia, - Monday, February 27, 2006 8:57 AM CST
We know that you will find the strength to get through this rough time with Colton. It just plain sucks that you have to!
ANYTHING!!! Forgot your toothbrush? Call. Want to beat up on some nurses? Give us a ring. Want a foot massage? No worries! ANYTHING. We mean it.
Just please take care of yourselves. He needs you healthly.
We love you guys sooooo much. Hang in there. This will be over soon and will just be a memory. Colt will get a battle scar to woo the ladies with... that no one will see unless he wants them to & you will be back to just having your little star at home safe and sound.
Love ya,
Todd, Mary Kay, Ashley, Mary Blakely & Baby Will <mk@mkminc.com>
Lake Worth, FL - Sunday, February 26, 2006 11:13 PM CST
Love, prayers, and a whole lot of faith coming to you from Rochester, NY... we love you guys! Be strong. xoxoxoxoxoxo
Yollie <prynnces@frontiernet.net>
- Sunday, February 26, 2006 10:52 PM CST
I read about you from Cheyenne's page and am a friend of Katia solomon. My cousin was born with the very same fused cranium. He was operated on at All Children's Hospital in Clearwater, Fl. in the early 80's. He was only 3 months old at the time of the surgery and by two the skull closed up on it's own. He's now a normal happy healthy 25 year old. I will keep you all in my prayers. Denise
Denise Scott <dscott@gencode.com>
Dade City, Fl 33523 - Saturday, February 25, 2006 7:47 PM CST
Hi there, I am a member of the Prayer Bears and SOEW and just learned about Colt. I will truly keep you in my prayers and thoughts daily and I will put you on the prayer list at my Church. I am a brain stem stroke survivor and I know there is POWER in PRAYER. God bless you and your family. I will check in soon.
Jan Johnson <SedonaHeart@aol.com>
Churchton, md usa - Saturday, February 25, 2006 1:50 PM CST
I just found this site and want you to know that you all are in my prayers.
http://www.freewebs.com/prayerbears/
Anne Elwell ~The Prayer Bears~ <wife4travis@yahoo.com>
Galesburg, MI USA - Friday, February 24, 2006 6:55 PM CST
Wishing Colton a successful surgery and super-fast recovery.
Terry, Julianna Banana's dad <tjosephson@shaw.ca>
Winnipeg, Canada - Friday, February 24, 2006 4:17 PM CST
I just read about Colton's diagnosis on Cheyenne's site. I'm sorry for the medical anxieties that you are once again facing. I wanted to give you some encouragement. My cousin had the same condition and underwent this surgery as an infant. She is now in her mid 20s and is finishing veterinary school in England. I pray that this is encouraging to you.
Claire Strayer <cstrayer@hrtc.net>
McCordsville, IN - Friday, February 24, 2006 9:22 AM CST
Thinking of you. . .
I have just "met" you and have been very touched by your story. I know much of the pain you are going through, as we also have lost a son and a stillborn daughter, and I know the fear that can take over when another child is sick. Let your complete strength be in God who WILL sustain you. He loves our children more than we do and He understands our fears and tears. I will be back to check-up on you all, and pray that you will know God's peace that passes ALL understanding.
loni <lonistel@isery.net>
michigan, usa - Friday, February 24, 2006 8:18 AM CST
Dear Susan and Mark
Continuing to keep you in our hearts and prayers. May God sustain you, strengthen you and uphold you.
Blesings to you,
Katrina
Katrina Gray <katrinagray3@yahoo.com>
- Friday, February 24, 2006 6:22 AM CST
Mark and Susan,
We'll certainly be keeping all of you in our thoughts and prayers as you go through the surgery with baby Colton. He's got his guardian angel, Jakey, watching over him!
Love and hugs to you all,
Eva and Rodney~The Prayer Bears~ <KWfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Thursday, February 23, 2006 9:55 PM CST
Hi Susan,
I have followed your page and several other children's for a long time. I am sorry to hear that Colton needs to have surgery. I will keep all of you in my prayers, please keep us all posted on any news or changes.
Susan and Scott Stein <hilltophedgies@msn.com>
Layton, UT - Thursday, February 23, 2006 5:45 PM CST
I'm here from Cheyenne's page.
I will certainly pray for Colt and his
surgery.
prayers and love from Missouri
mrs pam <preschoolpenpals@yahoo.com>
St Louis, - Thursday, February 23, 2006 8:05 AM CST
Dear Susan and Mark,
I am here also from Cheyenne Fiveash's website. I followed Chey for some of her last year of life and continue to pray for her family. I also prayed for Connor Hunley, and I continue to sign his guest book, too.
I am very sorry to learn about Colton's difficulty. I have read a little about this and have seen some segments on the news about it, too. It apparently is a very successful (and totally amazing) surgery. I pray that it will go well for Colton and that he will have a long, full, and happy life.
God bless you all!
Grace and peace,
~Colette~
Colette
Clifton Park, NY U.S.A. - Thursday, February 23, 2006 5:22 AM CST
Susan,
I'm coming here from Angel Cheyenne's page. Her dad, Roy, mentioned that you could use some prayers right now. I'm sorry to hear that your little guy needs to have surgery. How frightening for all of you. I will pray for peace of mind for you and your husband and for your son to come through surgery with flying colors.
Mary <miniteasets@mail2world.com>
Worth, IL USA - Wednesday, February 22, 2006 2:36 PM CST
My prayers will be with you! I am sure Colton will come through with flying colors and little ones heal so quickly! In a short time this will be only a memory!
Becky
A Friend in, Texas - Wednesday, February 22, 2006 12:51 AM CST
OMG, I am so sorry to hear about your precious baby needing surgery. How scary.
I would like to let you know that a friend of mines sister's baby was also diagnosed with this. His was discovered around 5 months and he had alot of delays b/c of it.
After surgery, he rapidly gained developmentally and now at age 6 is a perfect, healthy, beautiful boy who does very well in school. You would never know anything was wrong with him.
Many prayers and positive thoughts for dear Colton.
Rita B <thegr8bolli@yahoo.com>
Woodbridge, Va USA - Wednesday, February 22, 2006 0:20 AM CST
Oh Susan...I was so upset to read your update today. Please let me know if there is anything I can do for you. As always, I will keep all of you in my prayers.
Marie <BaliTwins@aol.com>
- Tuesday, February 21, 2006 6:14 PM CST
Dear Susan and Mark,
Our hearts were breaking as Brent and I read your update. Naturally, we understand your feelings, but remember that the same LORD that sustained you with Jake will also sustain you with Colton. He is there waiting for you with open arms as you step into the hospital.
Colton is His child, too and will give you the grace and peace and support through this next season of parenthood.
I will continue to pray for your family and we would so love to have a brief update as soon as you or someone close to you can let us know how baby Colton Jake is doing.
Remember, lean on the everlasting arms of God. He is there for you.
Blessings and Prayers
Katrina Gray <katrinagray3@yahoo.com>
- Tuesday, February 21, 2006 6:00 PM CST
As always, I will continue to keep you in our prayers!!! Continue to keep strong and keep your eyes on the Lord. He will guide you through....
willis family <sunbury27@aol.com>
- Tuesday, February 21, 2006 2:37 PM CST
Hi, Susan and Mark
How about an update! We miss hearing from you. How is the sleep deprivation going for you and Mark? Remember, it does get easier!
Blessings,
Katrina
Katrina Gray
- Sunday, February 19, 2006 4:22 PM CST
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