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Paul and Terese, I am currently in nursing school in a pediatric class. We picked a child off of the caring bridge website and wrote a paper, and we also have a presentation to do on the paper and on our child that we chose. I chose Charlie and was thoroughly touched by your story. I was wondering if either of you see this before the end of November 2015, if you wouldn't mind emailing me? I would love to ask you a few specific questions about Charlie if you wouldn't mind. Thank you so much for your time!
Kelsie <kkbroncofan@gmail.com>
- Wednesday, October 28, 2015 6:26 PM CDT
Today would have been your 16th birthday. I'm sure your Great Grandparents found a special way to celebrate. Give Zeus a hug!
Heather
- Saturday, October 10, 2015 9:52 PM CDT
Hope you had a great birthday in Heaven Charlie! I still come to your page occasionally to see your smiling face.
Leigh Ann Edwards <kycats31@AOL.COM>
BOWLING GREEN, KY - Wednesday, October 15, 2014 2:22 PM CDT
Happy Birthday Charlie!
Heather
, - Friday, October 10, 2014 8:52 AM CDT
You're family is in my thoughts today.
Jennifer Hartley
- Tuesday, October 7, 2014 9:28 AM CDT
Happy Birthday Charlie! It's going to be a warm one this year. Thanks for leading me to the rainbow piñatas the other day. Oma & Opa will be surprised. I wonder what you would have liked for a birthday present this year and how tall you would be!

Give Zeus a big hug for me!

- Heather
- Thursday, October 10, 2013 8:21 AM CDT
Happy Birthday Charlie!
Heather
- Wednesday, October 10, 2012 8:47 AM CDT
It was beautiful to eat rainbow jello at church yesterday and to imagine a little boy I never got the chance to meet, but whose presence in my heart is as much a part of your family as those of you I do know and love. I will "remember" him with you, on anniversaries like yesterday and on birthdays, like Wednesday, and on all the other ordinary days that are no different: you will love him forever and, because of you, so will I.
Lisa Wiens Heinsohn <lmwiens1969@mac.com>
Shoreview, MN USA - Monday, October 8, 2012 9:18 AM CDT
Your family is deep in my heart as you are coming up on the 10th anniversary. ((HUGS))
Jennifer Hartley
- Tuesday, September 11, 2012 12:18 AM CDT
Thinking of you and your family this week. How has it been 9 years?
Tricia Armstrong <tryka72@comcast.net>
- Saturday, October 8, 2011 10:34 PM CDT
You're family is in my thoughts..
Jennifer Hartley <hartley1025@verizon.net>
- Wednesday, October 13, 2010 11:32 AM CDT
Dear Charlie,
Every now and again people come into your life that change you forever. Charlie, you will always be that person for me. How a child that lived only 3 short years has had such a lasting impact on me will forever be the miracle of you and your family. In your short life you taught me that it doesn't matter your size or age, your impact on the world can be powerful. You taught me that working with kids is the best job in the whole world. You taught me that a diamond pattern is a harlequin. You taught me that tummy tubes don't hurt and it's kinda fun to spin them. You taught me that rainbows are best especially in the form of socks. You taught me that people often forget indigo and they really shouldn't. You taught me that olives fit perfectly on fingertips. You taught me that if you have to drink Carnation Instant Breakfast the cappucino flavor is best flavor. You taught me the "my hands say hello" song. And most importantly, you taught me to love life with every breath because it is far too short.

Earlier this week I attended the wake of my favorite PICU nurse at Children's and my immediate thought was how lucky she was to have you there Charlie to show her the ropes and give her a hug. So, when you see Donna give her a hug because I am sure she misses her little girl as much as you miss your mommy (and daddy and brothers too of course).

I miss you so and I hope your family is doing well.
All my love,
Tricia

Tricia Armstrong <tryka72@comcast.net>
St Paul, MN USA - Thursday, October 7, 2010 10:54 PM CDT
I love the rainbow cupcakes! (Although I can hear Charlie wondering, "Where's the indigo???").

(((HUGS))) to you guys today!

Robyn <rjhennen@Msn.com>
- Thursday, October 7, 2010 3:08 PM CDT
Paul and Terese,

Remembering Charlie today and thinking of you!

Kim Dennstedt
- Thursday, October 7, 2010 11:38 AM CDT
Just a short message to say I am thinking of you this Christmas.


Love

Vikki
www.postpals.co.uk

Vikki George <viks@postpals.co.uk>
United Kingdom - Wednesday, December 16, 2009 6:10 AM CST
Have a gentle Holiday season & a very happy & healthy New Year!
Jennifer Hartley <hartley1025@verizon.net>
- Tuesday, November 24, 2009 6:50 AM CST
Awww, LOVE the new pic of Charlie.

Hope the move went smoothly & am glad that Jack is enjoying the fort.

Jennifer Hartley <hartley1025@verizon.net>
- Thursday, October 15, 2009 2:30 PM CDT
I'm a dad to a boy called Charlie. He's two, and has his own medical problems, although there is no comparison to what you've all been through.

If my Charlie grows to be half the little man your boy was at three, I'll be very, very proud.

Thank you for your journal. In return, know that there are an awful lot of people out there right now who think about and admire your Charlie every day.

That's pretty special, isn't it?

This Internet thing isn't half bad!

Mike <mikegcopy@yahoo.co.uk>
Melbourne, VIC Australia - Wednesday, October 14, 2009 0:46 AM CDT
I sat at my desk today and looked at the same picture of Charlie I've been looking at now for the past few years. I see him proudly with olives on his fingers and then it occurred to me that we are indeed in the first week of October. With a sense of hope I logged onto what is considered a "classic" caring bridge page and to my delight found an update. Your last entry brought tears to my eyes and made me spend some time remembering not only Charlie but your amazing family. I have missed Charlie always but now with 2 kids of my own cannot even begin to relate to what you all have been through and continue to go through each and every day of your life. I think of you often and cannot help but imagine what an eleven year old Charlie would have to say to me. I still clearly remember him saying to me, "Tricia, that is not called a diamond pattern it's called a harlequin pattern." He was two... what an amazing child, an amazing soul and an even more amazing family.

I pray for you often and hope that your days are filled with good health and happiness. Always know what an impact you all have had in this world and I imagine that 20 years from now when I'm sitting at the same desk at the same hospital Charlie will still be smiling down on me with olives on his fingers...
Love to you all,
Tricia

Tricia Armstrong <tryka72@comcast.net>
St Paul, MN USA - Tuesday, October 6, 2009 9:48 AM CDT
((HUGS)) as Charlie's Anniversary is coming up.
Jennifer Hartley <hartley1025@verizon.net>
- Thursday, October 1, 2009 11:51 AM CDT
Love the new pics. Charlie truly is an Angel.
Jennifer Hartley <hartley1025@verizon.net>
- Thursday, September 3, 2009 2:30 AM CDT
Moving? Did you say moving? THANK YOU FOR THE FROG. HE COULDN'T BE MORE PERFECT!!!
Moving?

Chris~ <chrismyrah@frontiernet.net>
Rosemount, MN USA - Saturday, August 22, 2009 11:35 PM CDT
That is a wonderful story of how life comes in a full circle.
Jenn Hartley <hartley1025@verizon.net>
- Friday, May 29, 2009 6:05 AM CDT
Miss you!
Chris~ <chrismyrah@frontiernet.net>
Rosemount, MN 55068 - Tuesday, May 19, 2009 10:12 PM CDT
THANK YOU THAT WAS SO BEAUTIFUL TO READ....THANK YOU!!!!I can say no more than that.
Deb www.caringbridge.com/mn/ajtoivola <dltoivola@yahoo.com>
gilbert, mn - Saturday, April 18, 2009 1:14 AM CDT
JUST WANTED TO WISH YOU A MERRY CHRISTMAS AND HAPPY NEW YEAR.
DEB WWW.CARINGBRIDGE.COM/MN/AJTOIVOLA <DLTOIVOLA@YAHOO.COM>
GILBERT, MN - Wednesday, December 24, 2008 1:24 PM CST
Happy Thanksgiving!

www.caringbridge.org/visit/quiltsofhope

www.freewebs.com/quilts-of-hope

Jaime <aquiltofhope@aol.com>
- Wednesday, November 26, 2008 3:37 PM CST
Dear Terese,
I found my way to your blog about your beautiful son when I got back in touch with Cathy Kanaday. Charlie obviously touched a lot of lives and made an unalterable impact on this world. You must be very proud of him.

Thayne and I lost our daughter, Grace, on January 26, 2006. She was born too early and, although she struggled to live, she was just too small. Sometimes when I go out to visit her grave I wonder if it is harder to lose a child after they have entered the world, the way you did. I've decided that you can't quantify grief especially over the death of a child.

I do know that when it happens one can either lose faith or decide to cling even more stubbornly to it. Thayne & I chose the latter but we certainly went through an intense period of despair in which we questioned God's goodness. Now we are at a place where, even though we will never be able to have our own biological children, we are more hopeful in God's promise than ever before.

I was extremely touched by your words and by your son's spirit. He is a beautiful boy.

Julie (Armstrong) Doak <jdoakco@msn.com>
Greeley, CO USA - Tuesday, November 11, 2008 11:14 AM CST
Thinking of you always and forever. Happy Birthday Charlie. God Bless you all.
Deb www.caringbridge.com/mn/ajtoivola
Gilbert, mn - Tuesday, October 14, 2008 8:02 PM CDT
((HUGS))
Jennifer Hartley <hartley1025@verizon.net>
- Monday, October 13, 2008 1:31 PM CDT
Happy Birthday, Charlie! It's so hard for me to picture what you'd be like as a 10 year old. I guess it's not too much of a stretch to imagine you'd be playing with Legos and obsessing over Star Wars and Wii games like your brothers and cousins. I hope that heaven is filled with Legos (even the Collectors' Sets and hard-to-find items).

We love you and miss you!

Robyn Hennen <rjhennen@msn.com>
Cold Spring, MN - Friday, October 10, 2008 10:13 AM CDT
I can't wait to see the pictures. I miss him. 10 years old. Wow. You are going to have to start tie-dying Jack some socks! I will keep an eye out for fun boy socks!
Chris <chrismyrah@frontiernet.net>
Rosemount, mn USA - Wednesday, October 8, 2008 10:33 AM CDT
We saw the magnificent rainbow last night and I thought of Charlie. I wish I had had the chance to meet that special boy. He continues to touch so many...

Charlie and Brian share the same birthday - we will celebrate both lives on Friday.

Love to your family. ~Sara,Brian, Ryan, Elizabeth and Sophie

Sara Phillips <samatzoll@charter.net>
Farmington, MN USA - Wednesday, October 8, 2008 7:24 AM CDT
I was thinking about you today and sending good thoughts your way. I continue to keep Charlie and all of you in my prayers.
God Bless, Lisa

Lisa Plowman <plowsy@msn.com>
- Tuesday, October 7, 2008 11:24 AM CDT
HELP ST. JUDE BY CREATING A PEPPER AT CHILI'S TO FIGHT CHILDHOOD CANCER!!!!


St. Jude Children’s Research Hospital and Chili’s Grill & Bar® announced the kick-off of their fifth annual Create-A-Pepper to Fight Childhood Cancer campaign. Now through September 30, Chili’s restaurants around the country and, for the first time, in Puerto Rico, are marking National Childhood Cancer Awareness Month by inviting people to get creative and raise funds to help St. Jude find cures and save children with cancer and other catastrophic childhood diseases.
Guests at participating Chili’s restaurants can contribute to St. Jude in multiple ways:

- Make a donation to St. Jude and receive a Create-A-Pepper chili pepper coloring sheet designed for display at restaurants during the month.

- Purchase Create-A-Pepper T-shirts that can be customized with permanent marker.

- Buy a customized Create-A-Pepper key that can be cut for use at home or the office.

- Eat at Chili’s on Monday, Sept. 29, when Chili’s will donate 100 percent of profits from participating restaurant sales to St. Jude.

Visit www.createapepper.com and to make an online donation.

PASS IT AROUND!!!!

GET YOUR FRIENDS/FAMILY TOGETHER!!! TRUST ME ITS SUCH AN AMAZING CAUSE :)

CONTACT ME AT WWWW.MYSPACE.COM/CINDY9584

Cindy Choi
Miami, FL - Monday, September 15, 2008 3:41 PM CDT
my son is 8 years old and the doctors are saying he is in his last stages. i just know how am i going to live without my son. so i think you guys are so strong and god bless your family
jennifer <on3onlydynasty@yahoo.com>
brooklyn, ny - Saturday, August 16, 2008 1:56 AM CDT
Charlie...
I thought of you today as I attended the funeral of another little one I worked with at Children's. Sophia is just 3 1/2 weeks old but is terribly loved here on earth and terribly missed by her mommy and daddy. Please take her under your wing and show her the way. She needs a friend right now.
Thanks Charlie...
Love,
Tricia

Tricia
- Wednesday, March 26, 2008 10:25 PM CDT
Merry Christmas Charlie!!
Heather
- Tuesday, December 25, 2007 11:59 AM CST
Hi!

Your Charlie has been on my mind alot these last few weeks... My youngest daughter, Sarah just turned 4. I look at her and my heart aches for your family because Charlie passed just before his 4th birthday. Hope all is well & hope this season is filled with Happy Memories & Wonderful Health!

Jennifer Hartley <hartley1025@verizon.net>
- Monday, November 26, 2007 1:28 PM CST
Happy Birthday Charlie!! I wonder what you would be like at nine and in the third grade. Would you still have the light blonde hair? Talking non stop? Would everyone stop you were you go because people want to be around you? I'll never know, but will leave it to my imagination. You are missed so very much.
Auntie Heather <heatherk@visi.com>
- Wednesday, October 10, 2007 7:53 PM CDT
We have never met, but I wanted you to know that I have read Charlie's journal and continue to stop by to see his adorable face. Hope Charlie sent you several signs yesterday that he is still among us!
Leigh Ann Edwards <PeapodsMama@aol.com>
Bowling Green, KY - Monday, October 8, 2007 11:11 AM CDT
Just stopping by to let you know I was thinking about you guys & hope this month treats you gently as Charlie's 5 year Angelversary is upon you.

((HUGS))

Jennifer Hartley <ronjenn696@prodigy.net>
- Tuesday, October 2, 2007 1:40 PM CDT
Terese and Paul...
Shame on me! I got the invite for Charlie's relay for life but was out of town for the ice cream social. I think of you all often and cannot believe Jack is old enough for school. Time flies. Congrats to Liam, he's always been such an amazing boy! I look forward to hearing where your adventures go next and as always, Charlie looks over me at my desk with a black olive on each finger.
All my best!
Tricia

Tricia Armstrong <tricia.armstrong@childrensmn.org>
- Monday, August 6, 2007 10:53 PM CDT
I don't know if you'll see this, but I wanted you to know that Charlie's story has inspired me and an entire hospital in Abilene, TX. Your family's strength is amazing and is ultimately helping out kids in West Texas. Thank you for the hope you give.
Mark Rogers
Abilene, TX USA - Monday, April 30, 2007 4:16 PM CDT
Stopped by the other day and read Charlies journal. What a brave sweet boy. I am sorry for your loss. Time just seems to widen the void and then you get used to it....
Elizabeth Spehr <e_spehr_99@yahoo.com>
Washington, DC USA - Friday, April 6, 2007 12:32 AM CDT
Hi,

I just wanted to sign in and tell me I was thinking of your Charlie today. I looked at my back door & saw my daughter's first 0 on her vocabulary test. I never noticed b4 that there is a Dr. Suess sticker on it that says "happy birthday to me". I know that Charlie liked Dr. Suess books and you write about the Happy Birthday to me each angelversary.

Hope all is well and hope Jack had a great birthday!

Jenn Hartley <ronjenn696@prodigy.net>
- Wednesday, March 21, 2007 4:07 PM CDT
Just sending some


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To you,

From Everyone at Post Pals
www.postpals.co.uk

viks <viks@postpals.co.uk>
- Tuesday, March 20, 2007 10:53 PM CDT
I have been so bad about signing on. I hope you are all doing well. We were snowed in yesterday but I think you had the worst of it. Today the sun is out the I have had to take care of a fly and ladybug that have awoke. I think of you all often. Take care and remember we are thinking of you upin the north country.
Deb www.caringbridge.com/mn/ajtoivola <dltoivola@yahoo.com>
gilbert, mn - Saturday, March 3, 2007 1:40 PM CST
I found your little boys website recently. I lost my 3 year to hepatoblastoma July 22nd 2006. I just wanted to let you know that I found some hope reading your past journals, as little glimmers of light came into them. Perhaps I thought there is hope that I will feel some kind of happiness again in my lifetime. At the moment I still feel so sad and lost and that life is meaningless. If you ever feel like emailing please do. What a gorgeous boy, he reminds me a little of our Conor.
Sally <sallymick@hotmail.com>
- Monday, February 12, 2007 8:25 PM CST
Dear Mr. Hallmark,

I am writing to you from heaven, and though it must appear,
A rather strange idea, I see everything from here,
I just popped in to visit, your stores to find a card,
A card of love for my parents, as this day for them is hard,
There must be some mistake I thought, every card you can imagine,
except I could not find a card, from a child that lives in heaven,
they are still a parent too, no matter where I reside,
I had to leave, they understand, but oh the tears they cried,
I thought that if I wrote to you, that you would come to know,
that though I live in heaven now, I still love my parents so,
they talk with me, and dreams with me, we still share laughter too,
memories are our way of speaking now, would you see what you can do?
my parents carry me in their heart, their tears they hide from sight,
they plants flowers in my garden, there my living memory dwells,
they writes to other grieving parents, trying to ease there pain as well,
so you see Mr. Hallmark, though I no longer live on earth,
I must find a way, to remind her of her wondrous worth,
they need to be honored, and be remembered too,
just as the children of the earth will do,
thank you Mr. Hallmark, I know you will do your best,
find a way to tell them, how much they mean to me,
until I can do it for myself, when she joins me in eternity.


I know Christmas must be so hard for you although I can't comprehend how difficult it must be.

All my love,

Viks


viks <viks@postpals.co.uk>
- Friday, December 22, 2006 8:39 AM CST
Praying the holidays treat you gently.
Jenn Hartley <ronjenn696@prodigy.net>
- Wednesday, December 20, 2006 12:14 AM CST
Your family is in my prayers, especially during this time of the year.
Jennifer A from the prayer bears and ones who care <sassy_girl913@yahoo.com>
Carrolton, Texas - Saturday, October 21, 2006 11:32 AM CDT
I just wanted you to know I was thinking of you alot this week and today out of the blue I thought of you then I knew why. Happy birthday Charlie. You are all in my prayers and thoughts always. I don't know if you remember when we meet at Chris's house well I just got the pictures developed (I know shame on me.) They turned out really good. God bless.
Debbie www.caringbridge.com/mn/ajtoivola
gilbert, mn - Tuesday, October 10, 2006 9:24 PM CDT
Happy Birthday Charlie
You are so missed
Love, Aunt Alicia (and future Uncle Andy)

Alicia Kiehne
Plymouth, mn - Tuesday, October 10, 2006 3:45 PM CDT
Happy Birthday Charlie! You are missed so very much.
Heather
- Tuesday, October 10, 2006 6:49 AM CDT
Charlie's importance will never diminish in our lives either. We saw a double rainbow over the Grand Canyon last month - Allie and Justin let everyone who was within earshot know that their friend Charlie was saying hello.
Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Sunday, October 8, 2006 10:03 AM CDT
Has it really been four years? Missing you each and every day...
Robyn <RJHennen@msn.com>
- Saturday, October 7, 2006 10:53 AM CDT
Sweet Dreams Charlie.


Jenn Hartley <ronjenn696@prodigy.net>
- Saturday, October 7, 2006 7:50 AM CDT
Your family is in my heart & prayers as Charlies birthday and passing dates are upon you.

Hope all is well.

Jenn Hartley <ronjenn696@prodigy.net>
- Wednesday, October 4, 2006 7:06 AM CDT
Thinking of you and wanted to let you know I still check in on you. Hope you are doing well. It is coming to that time of the year again. I will be here for you always.
Deb www.caringbridge.com/mn/ajtoivola <dltoivola@yahoo.com>
gilbert, mn - Friday, September 15, 2006 10:58 PM CDT
Thinking of you and wanted to let you know I still check in on you. Hope you are doing well. It is coming to that time of the year again. I will be here for you always.
Deb www.caringbridge.com/mn/ajtoivola <dltoivola@yahoo.com>
gilbert, mn - Friday, September 15, 2006 10:58 PM CDT
Hi everyone, hope all is well. How was the relay for life? I am sure it was a great success again. Thinking of you always.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Monday, August 21, 2006 11:02 PM CDT


I was posting this picture on Cassie's site, and thought I would swing by your page to say "hello", I hope the Relay for Life went well.

Lots of love

Viks



viks <viks@postpals.co.uk>
- Wednesday, August 16, 2006 6:39 PM CDT
Terese, Thank you so much for your note on Eliah's cb page. I think about you guys all the time and speak of you often...I cannot believe that it has been nearly 4 years since sweet little Charlie went to be with Jesus. The sadness is still very fresh in my heart as I know it is in yours. I so appreciate your friendship, love, and prayers for Eliah. Please keep in touch as you are able. How is Charlie's garden?
Chelle Smith <MamaSmith2@aol.com (www.caringbridge.org/oh/eliah)>
Columbus, OH - Tuesday, August 1, 2006 8:18 AM CDT
Terese, Thank you so much for your note on Eliah's cb page. I think about you guys all the time and speak of you often...I cannot believe that it has been nearly 4 years since sweet little Charlie went to be with Jesus. The sadness is still very fresh in my heart as I know it is in yours. I so appreciate your friendship, love, and prayers for Eliah. Please keep in touch as you are able. How is Charlie's garden?
Chelle Smith <MamaSmith2@aol.com (www.caringbridge.org/oh/eliah)>
Columbus, OH - Tuesday, August 1, 2006 8:18 AM CDT
Hello Kiehne's...
Just checking in after not visiting for awhile. Wow, are Liam and Jack getting big! It's amazing how much Jack looks like Charlie! Good luck at the relay, you'll be in my thoughts. I still think of you all often and see Charlie's smile on my desk and in my mind daily. In fact, I was remembering a Charlie story the other day while doing the crayola computer game at work. Charlie and I played it during one of our last sessions together and he was coloring a dinosaur for Liam. I said, oh, look at that diamond pattern, isn't it neat. Charlie responded with "that's not diamonds, it's called harlequin." That young man was perhaps the brightest 2 year old I've ever met! What a great kid!
I hope all is well with you all, enjoy your root beer and your walk!
Tricia

Tricia Armstrong <tricia.armstrong@childrensmn.org>
St Paul, MN USA - Wednesday, July 19, 2006 8:46 PM CDT
Happy birthday PAUL. Next year is the big 40. Well, Why push it right. Hope you all have a great summer and stay cool. We are always thinking of you.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, MN - Monday, July 17, 2006 10:43 AM CDT
Hi everyone, I hope you are all doing good. I have been checking in and haven't heard from you. We are always thinking of you guys.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Friday, June 23, 2006 11:11 PM CDT
I just read Charlie's story of his sweet life. I am terribly sorry for your loss. Maybe Charlie and my son are playing together in Heaven. I had 26 weeker twins. One is home with me and the other, Gavin, passed May 18, 2005 at 6 1/2 months due to prematurity issues and he also had Cystic Fibrosis, a genetic disease. Again, I'm so sorry for your loss.
Christina Cornwell <trinity991@yahoo.com>
Regina, SK Canada - Thursday, March 23, 2006 1:07 AM CST
Wishing you a Happy & Healthy Christmas & New Year!
Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Friday, December 23, 2005 8:01 AM CST
I run an outreach for critcally ill children and children with special
needs, I also have memorials of children whom have passed away! I would love
to add your child so please check out the outreach and get back to me!

Tanja <tanja@mnsi.net>
Canada - Tuesday, November 15, 2005 2:21 PM CST
Thinking of you this time of year. I think of you all often. Hope to get together with you again someday. I wish I knew you were by Duluth I live so close to Duluth. I love Duluth. God be with you.
Deb
Gilbert, MN - Wednesday, October 12, 2005 9:05 PM CDT
Happy Birthday Charlie
Wishing your family and friends peace through this unbearable time

Chris Gooch's mom <chrisrusso_@hotmail.com>
- Wednesday, October 12, 2005 7:01 AM CDT
Happy Birthday Charlie!!

Enjoy your rainbow cake!

Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Monday, October 10, 2005 12:38 AM CDT
Happy Birthday Charlie!!! I bet they have great parties in heaven. I wonder what kind of theme caked you asked to be made and what presents are on your list. I can only imagine and dream. Miss you.
Love, Heather
- Monday, October 10, 2005 8:10 AM CDT
Hiya Terese et al! I was just checking to see that my package arrived back in, say, around Sept 9? Hope so! I can scrounge around for my tracking slip....Hope all is well and would love an update on the fundraising! I'm running in the Race for the Cure on Sun....
Margot Mason <mmisfit@cox.net>
Phoenix, AZ USA - Thursday, October 6, 2005 11:01 PM CDT
Ok, so I can't read a calendar. I will be thinking of you tomorrow.
Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Thursday, October 6, 2005 6:58 PM CDT
Your family will be in my thoughts and prayers tomorrow - Charlie's 3rd Angel Anniversary... I will light a candle for your Little Buffalo.

((HUGS))

Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Thursday, October 6, 2005 10:51 AM CDT
Can tomorrow really be the day? It doesn't seem possible. Every day I think about Charlie, and every day I miss him. How has it been 3 years? I will be thinking of you all day tomorrow. I hope Liam is doing well. I hope Jack is too. We have some major catching up to do. I have been working two jobs, and have been so swamped - trying to adjust to working and parenting at the same time. I don't get how people do it!! But I think of you all the time, and can't wait to catch up.

I miss Charlie.

Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Wednesday, October 5, 2005 10:31 PM CDT
Hi Terese & Paul! So good to see you at the Carleton reunion a few months ago. Though we only met Charlie once, we are thinking of him as the calendar turns to October and remembering accompanying you on your journey three years ago. I particularly love the entry about Charlie's greeting babies in heaven. When my baby nephew died and was buried within site of Charlie's grave, it comforted me to think of an impish angel with rainbow socks inviting him to play. We will never forget how helpful you were to my sister during her own dark time. Our newest nephew continues to face the myraid challenges of Down Syndrome, now including profound hearing loss in one ear, but we are thankful for his presence and know all too well how precious his life is.
Nancy Withbroe & Paul Smolinsky <nwithbroe@verizon.net>
Takoma Park, MD USA - Saturday, October 1, 2005 8:49 PM CDT
Hey, Terese, Paul, Liam and Jack, Long time no see, hope to see you all very soon and hope you're looking forward to the upcoming holidays, bye for now! :)
Nicholas Kuehnast <psalms_23_4@hotmail.com>
Willmar, MN USA - Wednesday, August 24, 2005 4:44 PM CDT
Hey guys! I'm still gathering my package together to send! Ooh..it's the slow-mo postage habit...But no fear...I will get it together--pronto! Love you all! Margot
Margot Mason <mmisfit@cox.net>
Phoenix, AZ USA - Tuesday, August 16, 2005 8:42 AM CDT
Thanks for referring me to your website. I'm glad fundraising went well. Keep me posted for next year's Relay!
Rachel Lecher

Rachel Lecher <rachellecher@hotmail.com>
St. Paul, MN USA - Thursday, August 11, 2005 4:08 PM CDT
Thank you for sharing the story of your family and of your dear son Charlie. Reading your site reminds me again "Why I Relay". Enjoy your time at the Relay in White Bear Lake this weekend. It is a great event with some many wonderful people to celebrate and remember with. Thank you for all you do! God Bless.
B. R. <beth.ryan@cancer.org>
Milwaukee, WI - Thursday, July 28, 2005 5:14 PM CDT
Hello, Terese, Paul, Liam and Jack! It's been a LONG while since I wrote--I'm worse than the most wayward postal workers :) Your wonderful care package came last week..thank YOU. I loved the card, letter and very neat CD. (You have impeccable taste in books and music..always have, always will....I of course missed the social but want a report...sand art sounds great. (I vote for rainbow-paper origami cranes for 2006--neat, rewarding and aesthetically appealing....Just a thought.. I am sending a symbolic totem for you...you will see when it gets there...(Phoenix has some wonderfully ecclectic places to browse, escape the heat and muse...)
I will of COURSE include a check for the ACS as well. I recall fundraising during theTeam In Training marathon (Leukemia Society)...but am so jealous that nowadays they have tantalizing nut bars to ramp up the fiscal motivation! Robyn--my thoughts and hopes are with you and yours as you go through that hormone roller coaster! What's the term for a herd of buffalo anyway?

Margot Mason <mmisfit@cox.net>
Phoenix, AZ USA - Wednesday, July 27, 2005 10:42 PM CDT
Hope the ice cream social went well! My husband had to work on Saturday and the kids and I were "Weird weather" wimps. We were thinking of you all day and hope that you had a great turn out. Best wishes for Friday! Hope to see you soon! Amanda Campbell
Amanda Campbell <AJKufusCampbell@aol.com>
St. Paul, MN USA - Tuesday, July 26, 2005 8:26 AM CDT
Hi Terese,
Thank you so much for coming by our site. It is nice to be in touch with you once again. I am so sorry to see how Cancer has reared its ugly head, once again, in your life. We have added your sister to our prayers. Thanks for your kind words about the Relay... I am currently trying to figure out how to hide behind my children... :o)
I hope our paths cross again soon!

Lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Sunday, July 3, 2005 7:09 PM CDT
Just thinking of your family this week .. Charlie's diagnosis anniversary. Hope all is well!

Take care!

Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Thursday, June 23, 2005 6:35 AM CDT
Just thinking of you all and wondering how you're doing?
Athena
TN - Monday, June 6, 2005 3:34 PM CDT
Just thinking of your family on this beautiful spring day! I hope Charlie's rainbow garden grows wonderfully for you this year!! :o)
Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Friday, April 22, 2005 6:38 AM CDT

HAPPY EASTER LOVE WWW.POSTPALS.CO.UK


Post Pals <info@postpals.co.uk>
- Sunday, March 20, 2005 12:46 AM CST
Thank you so much for your web page. I read the journal history and was brought to tears. Charlie was such a brave kiddo with a strong family. Our daughter was just diagnosed with a stage 1 hepatoblastoma and it helps so much to read about other's who have battled this rare cancer. Thank you!
Rachel
- Friday, February 11, 2005 3:48 PM CST
Happy new year! What a beautiful child! Laura and her sons
.org/ca/coltonmeyer <l@aol.com >
- Tuesday, January 25, 2005 2:26 PM CST
Hi! Cute pic of Charlie the Walrus! I'm glad your holidays went well! Wishing you a Happy, Healthy New Year!
Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Wednesday, January 5, 2005 8:35 AM CST
Hello again...
You mean you FOLD laundry? Why? My children pull everything out in search of that one shirt, and then shove it all back in... Why ruin the wrinkles by folding? :o)

Great story, by the way...
Happy New Year!

Lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Tuesday, January 4, 2005 10:46 PM CST
Terese, I wanted to let you know that I came across your website tonight and I read through the entire journal history. My heart aches for all of you. I laughed and I cried getting to know all of you through your entries and I feel so touched by the life that Charlie led and the lives you all continue to lead. I will keep checking in and offering my support to you all. God Bless.
Amy <amy@anezkah.com>
Brownstown, MI USA - Wednesday, December 29, 2004 10:12 PM CST
Hi Terese (is it with or without the "h")?

I just came by to check on your sweet family. Boy, if only you could have a 96 inch computer screen... Nah!
I hope your holiday was filled with joy! And I hope our paths cross again soon!!

lori (www.caringbridge.com/mn/noahhurley) <clowns@Myhometown.net>
n st paul, mn - Wednesday, December 29, 2004 9:41 PM CST
Charlie and family,

I just learned of your story from another family's caring bridge site. I wanted to let your parents know that there are still people "meeting" you Charlie and who will help to keep your spirit and memory alive here on earth. I hope the 'Dr. Seus' read you great stories for Christmas! The Grinch has always been one of my favorites!

love

Liz from *~Friends of Allie~*(formerly Allie's Angels) <queenliz@shaw.ca>
- Wednesday, December 29, 2004 8:29 PM CST
A PRAYER FOR CHRISTMAS


God Give Us eyes this Christmas
To see the Christmas Star.
And give us ears to hear the song
of angels from afar

And, with our eyes and ears attuned
for a message from above,
Let "Christmas Angels" speak to us
of hope and faith and love

Hope to light our pathway
When the way ahead is dark,
Hope to sing through stormy days,
with the sweetness of the lark

Faith to trust in things unseen
and know beyond all seeing
That it is in our Fathers love
We live and have our being

And love to break down barriers
of color, race and creed,
Love to see and understand
and help all those in need.

Lord, bless those we love this Christmas Day,be they near or far away Bless those good friends who mean so much and those with whom we're out of touch. We bring them all to You in prayer, and ask You to keep them in Your care.

Please know that you are thought of, in a very special way, not just this beautiful season but every day.

Chris Ullrich - Bella's Grammy <c_ullrich@msn.com, caringbridge.com/page/isabellaledesma>
- Friday, December 24, 2004 9:59 PM CST
Just stopping in to wish you a very, very Merry Christmas. Blessings to you.
Khalita My Caringbridge Site <khalita@hecaresonline.org>
Lexington, NC - Wednesday, December 22, 2004 7:34 PM CST
Hello Charlie's Family!
This is the first time I've visited your website because I have just now found out that Charlie passed away 2 years ago. I am so sorry and want you to know you are in my prayers (as well as my thoughts, which you always have been) My daughter Natalie, was neighbor to Charlie very soon after he was born. I had twins who were also born early and we had too had some obstacles to overcome after their birth. I remember talking to Terese and Paul every day about Charlie's and Natalie's progress. We both understood the struggles we parents face in times of challenge! Both of the kids were fighters!
Please know you are in our thoughts and prayers, even as late as this is coming to you!
Rebecca, Nick, Natalie, Katie, and Lily Dickson

Rebecca <becky9568@comcast.net>
Columbia Heights, MN USA - Tuesday, December 21, 2004 5:21 PM CST
HI. I am still out here. I have been visiting but not writing. Sorry. I think of you and hope you are doing good with the holidays. I thought I was but then I got really sad and guilty feeling. I miss my baby as I am sure you do too. This year seems to be harder than last year. I will make the best I can. I will be thinking of you alot on Christmas and throughout this time of year.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Thursday, December 16, 2004 7:49 PM CST
One of Paul's classmates, Jodi Schilling (Whalen) stopped by my office today as she is working for Winona Radio. She asked about the Paul Kiehne family and the rest of the Kiehne clan. I've shared this site with her. We are also "turning on" Christmas at our house and the kids are wishing it to be a White Christmas. Where's the snow? Look forward to seeing you in Harmony this Sunday.
Julie Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN USA - Thursday, December 16, 2004 2:09 PM CST
I am not sure what to say or how to say it, but wanted you to know I am thinking of you and the countless other parents who, like yourself, have to endure outliving a child. Especially this time of year. Every time I lose my patience or am flustered with so much going on, I think of how many people are looking at stockings or ornamemts, etc that they wont be hanging this year, and my heart breaks for you guys. I just don't get it....
Please know we are thinking of you.

Chris - Gooch's mom
Share the Love (formerly Adopt a Kid's Site)
- Tuesday, December 7, 2004 6:30 PM CST
Hello Charlie's family!!

Just stopping by to say I'm thinking of you guys!!

Congratulations on your home entertainment center - I can relate... When we moved here one year ago my DH drove us nuts for a few months trying to decide where the speakers will go, subwoofer, etc. blah blah blah I say! I don't know or care where any of that stuff goes, what it's purpose is, etc... But DH sure does care!! Now that we've repainted our living room from white to red, I'm cringing thinking about him going back into the attic and rewiring, rerouting things around for the perfect entertainment system. As long as the TV turns on and off, hey I'm happy! :o)

I'm glad you'll be decorating with Jack - I'm sure he will make it interesting for you!! Alex has been carrying around his HULK christmas ornament and repeating "after christmas i can keep it- it's mine. its a toy". I mean Incessantly repeating it - he's so into Christmas. On top of that he will turn 4 9:05pm on Christmas night. So he's doubly excited!!

Take Care ..... I'm stuck off the weight watchers wagon .. trying my own way and have lost 12 lbs so far!!

Happy Holidays!!


Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Sunday, December 5, 2004 11:38 PM CST
Hi, I don't know any other way to get in touch with you other than this guestbook. My nephew, Jake, (almost 3 y/o), had his first surgery today to remove mets from his right lung. We are expecting surgery on the left next week. We will then be facing the whole, "liver thing". Jake has Stage IV Hepatoblastoma. I can certainly understand this to be a very sensitive subject for you, but if you have any advice to give, I would appreciate it. Jake's website is also caringbridge.org/la/jakeowen. You can contact me at the enclosed e-mail address. He has had 7 rounds of chemo (all with a Cisplatin mixture), and his kidneys can't take much more. His AFP began at 747,000 and is now at 2,370. His date of diagnosis was June 1st. I am really wondering about your advice regarding resection vs. transplant. It seems this is still up in the air at this time for Jake.
Melanie Massey-Groves, Jake's Aunt Mo <mgroves@jam.rr.com>
West Monroe, LA - Monday, November 29, 2004 8:24 PM CST
Hi Terese and family,

I've been thinking of you all at this time of year. Wondering how you are. Also, is there a named tribute fund for Charlie or a specific place you'd like donations in his memory directed?
Hugs, Tami- former preemie-l member

Tami Emmons <tjesbc@yahoo.com>
Eagan, MN - Monday, November 29, 2004 11:33 AM CST
Howdy! I haven't been able to get a hold of you lately but wanted you to know I have been thinking of you. We've been having just loads of fun over here - Allie was diagnosed (laboratory confirmed)with pertussis. We have no idea how she got it, and she has received the entire series of immunizations, but somehow, there it is. The county, state and CDC all had to be notified, we and everyone we have been in close contact with has had to be treated, and we have 2 more days until we can safely go back out into the public. Well, safety being a relative term since somewhere out there in the public Allie contracted the germ. Unfortunately before we knew what it was we took the kids to the movies to take Allie's mind off her cough (we thought it was asthma related). We spread the joy through the theater. I am envisioning an outbreak in Apple Valley, the only common thread to be found being that all persons infected went and saw "The Incredibles" last Saturday. Whoops. (No pun intended there either).

Anyway, I hope all is well with you. I will continue to try and get a hold of you as we are in definite need of a good "catch up". Hmmm, cheesecake anyone?

Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Friday, November 19, 2004 11:32 PM CST
Hello, I have to send out a belated Birthday for you Charlie, I would have done this sooner but I have been without my computer since the end of August and haven't been on to see how all are doing. I just developed my pictures from when we got together and I would love to send them to you if you go to my email and send me your address. I hope you are doing okay. Hope we can see each other soon.
Deb
gilbert, mn - Tuesday, November 2, 2004 7:44 PM CST
HI,

MY NAME IS MARY ANN RIVERA AND MY PRECIOUS NEPHEW DAVID EDIEL WAS JUST DIAGNOSED WITH HEPATOBLASTOMA ONE WEEK AGO. YESTERDAY HE STARTED HIS FIRST CHEMO TREATMENT AND WE DO NOT KNOW WHAT TO EXPECT. THE FAMILY IS DEVASTADED I THINK WE ARE STILL ABSORBING THE NEWS. I JUST WANT YOU TO KNOW THAT I WILL HAVE YOUR LITTLE ANGEL IN MY PRAYERS AND BY READING YOUR STORIE I KNOW WE HAVE TO PRAY FOR THE BEST AND PREPARE FOR ANYTHING BUT I HAVE A LOT OF FAITH IN GOD THAT HE WILL BE A SURVIVOR GOD BLESS YOU AND YOUR FAMILY IN EVERY WAY.

MARY ANN RIVERA
ORLANDO, FLA

MARY ANN RIVERA <WWW.MAR14JMM@AOL.COM>
ORLANDO, FL USA - Thursday, October 21, 2004 9:47 AM CDT
Happy Birthday and Angelversary Charlie.
Diane Vaughn <divaughn@hotmail.com>
Kerrville, TX USA - Thursday, October 14, 2004 2:20 AM CDT
Happy Birthday Charlie, our prayers and thoughts are with your family.
Helen, Jeff and James Linn

Helen <najelen@ois.net.au>
Perth, WA Australia - Monday, October 11, 2004 8:24 AM CDT
Happy Birthday Dear Charlie, Happy Birthday to YOU!!!
Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Monday, October 11, 2004 7:23 AM CDT
With a kind heart, The RAOK Group
Koala Bear Hugs
Australia - Sunday, October 10, 2004 7:01 AM CDT
^*^*^*^*^*^*HAPPY BIRTHDAY IN HEAVEN, CHARLIE^*^*^*^*^**^*^*



Sending love and hugs from Michigan......

Eva Holland <KWfan4ever@yahoo.com>
www.caringbridge.org/mi/rodneyreeves, - Sunday, October 10, 2004 5:35 AM CDT
Special Heavenly Birthday wishes for Charlie...my thoughts and prayers are with his family.
Teri
Nashville, TN - Friday, October 8, 2004 9:50 PM CDT
Terese and family...
My thoughts and prayers are with you over these next few days. I cannot believe it's been 2 years, it seems as only yesterday he was laughing and telling me oh so many stories!

I am so sorry I couldn't make it to the tie dye party (and relay). We were out of town and I was so sad to miss it! It meant so much to me that you thought of me and I apologize for not letting you know I would not be at the party.

I think of you all often and Charlie's picture is on my desk, smiling so proudly with an olive on each finger.

God sure is lucky to have such an amazing angel by his side. A patient of mine died this week in NICU and if there was any comfort to the whole thing it was knowing Charlie would be up there showing him the ropes.

Thanks as always for keeping a way for others to remember and share in Charlie's life and legacy!

Tricia <ronandtricia@comcast.net>
St Paul, MN USA - Friday, October 8, 2004 9:18 PM CDT
Wishing you some good memories of Charlie, especially on the really hard days, and I know this week holds 2 very difficult milestones for you guys. What a little fighter he was. Wishing you all peace
Chris - Gooch's mom
Share the Love (formerly Adopt a Kid's Site)
- Thursday, October 7, 2004 9:35 PM CDT
We are thinking of you today.


John & Kim
- Thursday, October 7, 2004 12:46 AM CDT
Thinking of you all today, Terese. I wish I had had the pleasure of meeting sweet Charlie. We never see a rainbow without thinking of that precious little boy.
Warmly,
Sara, Brian, Ryan, Elizabeth and Sophie

Sara Phillips <samatzoll@charter.net>
Farmington, MN USA - Thursday, October 7, 2004 9:56 AM CDT
Dear Charlie's Family,

I've sat here typing and re-typing trying to find the right words but there are no right words to say. I'm thinking of you and your family and praying for you on Charlie's 2nd "anniversary".

Thank you again for sharing Charlie with all of us, I'm a better mother to my now almost 4 year old son. He is such a blessing to me, he's funny, silly and just so sweet. Charlie, his Angel friends and their lives have made me a better person. I don't take things for granted and appreciate all that comes my way, good or bad. Charlie's tough buffalo spirit lives on in all who have known or heard about him. His life is such an inspiration.




Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Thursday, October 7, 2004 9:39 AM CDT
This whole past week has been so full of thoughts of Charlie. God, I still miss him so, so, sooooo much. I want him back so badly. While my rational self understands that this will never happen, my irrational part still keeps waiting to rewind time, have this all be a mistake, and Charlie is waiting and ready to play another game of peanut butter and jelly. To hear him say "Cwis, I don't think Justin and Allison are playing fair" (which of course, they were not). I envision him ready to test a french fry in some horrible purple glop that for some reason Terese insists is ketchup. "Isn't it FUN?" She says.

But really, I want to rewind even further. I want to go back to when Charlie was healthy, playing out in the pirate pool and blowing bubbles, or charming all my friends and neighbors with his outgoing yet well behaved personality. THIS is the way I want to remember, the way I want things to BE.

But even as just a friend of the family, I will never forget the heart wrenching, soul stopping grief when your mom told me the news. I will never be able erase the complete break down that followed, along with the pure sense of helplessness.

I still feel that awful helplessness. I just remember when my mom died, there was so little anyone could truly do. All I can offer is to always be your friend, always be here to listen, and always, ALWAYS to remember Charlie. And I will. I will never, never forget.


Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Wednesday, October 6, 2004 11:28 PM CDT
Thinking of your precious Charlie this week. My thoughts and prayers are with his family and friends. Happy Heavenly Birthday Little Guy.
Teri
Nashville, TN - Wednesday, October 6, 2004 8:16 PM CDT
As usual, you inspire me to be a better person!
Keep your chin up. Perhaps this person has helped to throw you an "OK" curve ball and gets a better vehicle! Lastly, good luck with the potty training!
Thinking of you,
Chris

Chris Engstran <engstran@comcast.net>
White Bear Lake, MN - Saturday, September 18, 2004 11:30 PM CDT
I got your site from Noah's. I am so sorry for your loss. We lost our Little Jade in February from a heart defect. Your family will be in our prayers.

www.caringbridge.org/mn/jadedieger

Angel Jade's Mommy <jkitties@cloudnet.com>
Foley, MN USA - Wednesday, September 8, 2004 9:17 PM CDT
I came across your site from another caringbridge website. What an adorable little guy you have - and very courageous. You will be in my prayers
Sandy Jergens <sandyjergens@frontiernet.net www.caringbridge.com/mn/masonjergens>
Watertown, MN - Tuesday, September 7, 2004 11:18 AM CDT
Just stopping by to say Hello. I am so glad we finally got together. We had a wonderful time. I hope we can get together again. Thanks for talking and sharing memories. Liam, you are so kind and one of the nicest boys. Jack, what can I say you blew me a kiss goodbye, just what I needed. I hope your first day of school goes great. I will be thinking of you all tomorrow.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Tuesday, August 31, 2004 9:27 PM CDT
Hi Therese,
Would you believe that Noah is still talking about "that time when you & Oscar had a show and someone brought me a present"?
I hope you have been enjoying your August, and I truly hope our paths cross again soon!

Lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Sunday, August 29, 2004 11:15 PM CDT
We are keeping you all in our thoughts and prayers....

Heather, Jared, Robin and Jaxon

caringbridge.org/mn/jaxon <Heather_Tidd@hotmail.com>
- Thursday, August 26, 2004 10:10 AM CDT
I've been checking the page DAILY for pictures from the Relay. Please please pretty please post some pics of Team Charlie in all it's orange glory!
Robyn <RJHennen@msn.com>
- Wednesday, August 25, 2004 2:30 PM CDT
You are an AMAZING family - we respect you so much for all you do.

Our hugs from Sarasota, Florida!

Aunt Sandi and Uncle Doug

Sandi Suddaby <sandi@sandisuddaby.com>
Sarasota, FL USA - Friday, July 30, 2004 8:39 PM CDT
Hi, I work with Alicia and am honored and excited to be a part of Team Charlie on Friday. I have a 6 year old nephew who has survived Leukema and you and Charlie have been in my thoughts and prayes ever since Alicia shared Charlie and his struggles with me. I to have been touched by Charlie and again can't wait for Friday night.
Carrie Cote <ca2rel@comcast.net>
Brooklyn Park, MN USA - Tuesday, July 27, 2004 9:37 PM CDT
Hi Therese,
We were soooooooooooo bummed that we couldn't come to your party!! I hope you will update and post pictures. I am also hoping that it was incredibly successful!!!
Your treats were a big hit during our last steroid pulse!!

Lori Noah's Page <clowns@myhometown.net>
n st paul, mn - Sunday, July 25, 2004 10:27 PM CDT
Terese,

I'm glad you aren't going to let the page fade out yet. I still think of Charlie regularly and when I look at my own 3.5 year old I also think of Charlie - especially when Nicholas drives me to distraction and I'm thankful he's here to drive me crazy!

Hang in there and just keep talking - there are a lot of us out here whose lives have been permanantly touched by you and Charlie!

Eleanor, from Preemie-l.

Eleanor <epdyne@paradise.net.nz>
Wellington, New Zealand - Wednesday, July 21, 2004 2:42 AM CDT


Im sending all my love to you all,

Love

Viks

viks <viks@postpals.co.uk>
- Saturday, July 17, 2004 12:16 AM CDT
Hi Terese, We got your invite to the relay today. Its ou Liam's birthday that day, so we can't come. But I wanted you to know that I read your journal and am still in tears.Tears of compassion for your loss and tears of inspiration by your strength and your tremdenous faith.
I'll be snail mailing a contribution and wil be thinking of you all on the 30th.

meg becher <megazzel29@aol.com>
st paul, mn usa - Wednesday, July 14, 2004 3:39 PM CDT
I am still here and always will be. It has been so hard for me to write. I hope you don't fade out the page it keeps us close to you. Love to read about the kids and all you are doing. I love the rainbow garden. I am still trying to pick out the headstone. All to hard and still hard to go to the cemetery for me. I do things in my yard for him. I hope we get together soon we have so much in common. We will be here for the long haul.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Monday, July 5, 2004 9:39 PM CDT
I am still here and always will be. It has been so hard for me to write. I hope you don't fade out the page it keeps us close to you. Love to read about the kids and all you are doing. I love the rainbow garden. I am still trying to pick out the headstone. All to hard and still hard to go to the cemetery for me. I do things in my yard for him. I hope we get together soon we have so much in common. We will be here for the long haul.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Monday, July 5, 2004 9:38 PM CDT
I check on this page ALOT, it gives me an inner peace when my day gets too long. Reading about your thoughts, the family, family pictures.. it is still a great read. Except I do have one exception. I miss the picture of Jack running towards the camera, shovel in hand, with a face so covered with dirt and a grin that could light up the sky!! Always made my day to see that face. You have three absolutely adorable boys. And as another mom to three boys, I know adorable.

Take care

Kathy <poohbear@liche.net>
- Friday, July 2, 2004 8:59 AM CDT
Hello!
Just wanted to let you know that I too come often to Charlie's page and hope you don't let it fade away! I find so much inspiration in the gift you have of expression - saying so much so close to our hearts.
Thank you!

Chris Engstran <engstran@comcast.nt>
White Bear Lake, MN 55110 - Sunday, June 27, 2004 10:25 PM CDT
Terese,
Rest assured there are many of us out there who check Charlie's page on a regular basis and hope you don't let it fade away, not yet anyway! I feel selfish at times looking to the thoughts and words you share to keep me inspired. I hope that knowing how many people think of you often, and remember every minute of Charlie, helps you get through each day without him! I look at my little guy every day and say a prayer thanking God for such an amazing gift and hope he grows up to be the loving, bright, caring, thoughtful and generous boy that your sons already are. Thank you for including me (and the rest of us) on your journey and for helping us realize what a precious gift life is!

Have a great summer!
Love,
Tricia

Tricia <ronandtricia@comcast.net>
St Paul, MN USA - Tuesday, June 22, 2004 10:10 PM CDT
Hi Terese, Liam & Jack,
It was such a treat to have you at the show today!!! Your bright smiling faces were sure a boost to us!!
We were driving home a while ago, when Noah saw the bright package and asked what it was. We told him it was a present for him. He lit right up and said "FOR MEEE?????" We got home, and he couldn't open it fast enough. When I asked him what it was, he just beamed and shouted "It's treats!!!". He spent the next 20 minutes assembling the little canisters, and then moving them, and then re-assembling them.
Thank you so much for your kindness and for your support. I know your journey has been a long one, but I'm glad you're not going to let your page fade away...not yet, anyway. You have a powerful story to share and a beautiful family as testament to your strength and courage.
Noah's Page

Half Pint <clowns@myhometown.net>
n st paul, mn - Tuesday, June 22, 2004 1:43 PM CDT
Hello Terese, Paul, Liam & Jack,
I have been following Charlie’s journey from the beginning, I know I should have posted more often, just know that there are people who care about your family and want to know that your doing ok. My son was born the same year as Charlie and was also a preemie; he sees a rainbow in the sky and says “that’s Charlie’s“. Your website has taught me how to stop and take time out and look up at the sky and appreciate how special a rainbow can be. Charlie’s rainbow garden is beautiful and I am sure he is very proud of his family for making his garden so lovely. Liam and Jack have a wonderful summer, enjoy yourselves.

Helen, Jeff and James Linn

Helen Linn <najelen@ois.net.au>
Perth, WA Australia - Tuesday, June 22, 2004 9:15 AM CDT
We have never met, but I came across Charlie's page one day when I was checking on some other Caring Bridge families. I have read Charlie's story, and want you to know that seeing new pictures of your beautiful boy make my day! Please don't let his website fade away, because I would miss seeing him and hearing your wonderful stories about him.
Leigh Ann Edwards <APoohFan514321@aol.com>
Bowling Green, KY - Monday, June 21, 2004 7:47 AM CDT
Hi Terese & Family!!

I came to Charlie;s page over a year ago through weight watchers ... sadly since i first saw Charlie's page i've been led to many, many other caringbridge sites for sick children. It is too sad - children should not be sick - it's just not fair!!

I went to Charlie's page on the 19th, I remembered that date from a year ago, and wanted to see how your family was doing. Jack looks alot like Charlie - and Liam - wow - he's a big boy!! ONLY 2nd grade??? He looks like a 4th or 5th grader!!

Well, I just wanted to say that since I have come across Charlie's page I have become a better mother to my now 3-1/2 year old son Alex. Last year I really didn't know how to relate to him; I like pretty things and he likes to break everything. But reading Charlie's story made me realize that I need to try harder to understand Alex - that he is my only son and I need to relate to him as much as I can. And I have!!! I'm so lucky to have Alex - he makes me laugh on a minute to minute basis - he's so funny - must be the red hair!! :o) :o) He is a little sprite! I've never been around little boys before and he is my first experience and it has been wonderful. On the 19th I looked at him and thought of Charlie, Alex is the age when Charlie was diagnosed, and that makes me sad for Charlie and your family. I wish your family all the best and I hope that your journey back to Charlie will be a pleasant and bittersweet one!! Take Great Care of eachother Charlie's family!! P.S. Charlie's garden is beautiful - the light purple petunia's are my fav!! They smell so beautiful and the color is more beautiful when the sun is going down!! Charlie would be so happy!!

Jenn Hartley <ronjenn696@prodigy.net>
Bensalem, PA USA - Monday, June 21, 2004 6:49 AM CDT
Hi everyone, I know it has been along time. I have been checking in but not saying anything. I think of you alot. I am going to be in the cities in July for a memorial get together for children who passed at the hospital in July. I would love to get together with you all and Chris. I hope that will work. I will be in touch before then. Hope you are all doing good.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Wednesday, June 16, 2004 9:28 PM CDT
Hello, just dropping by to send a hug to you









Love Viks on behalf of everyone at Post Pals


viks <viks@postpals.co.uk>
- Sunday, May 30, 2004 5:20 PM CDT
Hey Charlie, we just
found your link and
we are soo glad we did

just
wanted to wish you
a great weekend.

sending you lots of love

craig, lauren, and helen

CRAIGGY

craig <trula1@comcast.net>
- Thursday, May 27, 2004 8:56 PM CDT
We're praying for your Mom, Terese. Our thoughts are with you.

Sara, Brian, Ryan, Elizabeth and Sophie <samatzoll@charter.net>
Farmington, MN USA - Tuesday, May 18, 2004 9:22 AM CDT
Hi Terese,
I am soooooo bummed that I didn't get to meet you!!! We were kind of like chickens with our heads cut off, but I so wanted to meet your family!
FYI...the folks who provided the bouncer have offered us a bouncer at our house one day this summer...
Maybe you'd like to come join us. :o) With or without your rainbow socks. :o)
Thank you for coming last night!!

lori (www.caringbridge.com/mn/noahhurley) <clowns@myhometown.net>
n st paul, mn - Saturday, May 15, 2004 11:21 AM CDT
Paul, Terese and Boys,

You are never too far from our thoughts. Terese, we're hoping that you get exactly the news that you're hoping to hear this afternoon and that your mom will recover quickly. Liam, I bet you can hardly wait for summer vacation! I love to see your work that is put on the web site - especially the Easter egg and your poems! Jack, what a trooper you are. We're glad you are back to your business of being a little boy! And Paul, didn't your parents ever tell you to fight with someone your own size? Just kidding - hope you're feeling better each day and recover quickly!

Kim and John Dennstedt <kim.dennstedt@supervalu.com>
- Friday, May 14, 2004 3:31 PM CDT
Hi Terese,
As if you needed on more thing...
Your Mom is definitely in my prayers. I am so glad they detected it early. I don't know if that information softens your shock or grief at hearing the news, because this is still bad news to learn that Cancer has found its way to another loved one. I pray her surgery will remove all of the bad stuff.
I will be lifting everyone's pants looking for rainbow socks. :o)

lori (www.caringbridge.com/mn/noahhurley) <clowns@myhometown.net>
n st paul, mn - Friday, May 14, 2004 11:18 AM CDT
Oh my goodness!!!
I have just peeled my jaw from the floor!
I can't believe what you are dealing with. I am so, so, so sorry!! So, with a "near miss", does that mean the driver accepts no responsibility???
We will be in the clinic on Monday (either clinic or short stay...I'm not sure, but if you're there, I'd LOVE to meet you!!!)
Where do you live? do you need help with yardwork or other stereotypically male stuff while Paul is healing??? Have truck; will travel! You were already in our prayers, but we're saying a few extra!

lori (www.caringbridge.com/mn/noahhurley) <clowns@myhometown.net>
n st paul, mn - Wednesday, May 12, 2004 10:02 AM CDT
Hi There!
Thank you so much for coming to our site. Again, I am inspired at your courage and strength in handling your children's medical issues. I can only imagine what an incredible Mother you must be, to have been entrusted with such sweet cherubs who need so much love and care. We will keep you in our prayers.

lori (www.caringbridge.com/mn/noahhurley) <clowns@myhometown.net>
n st paul, mn - Thursday, May 6, 2004 3:03 PM CDT
I found your link from
Noah's page, dropping
by to wish you a great
weekend.

love, craig, lauren and helen

CRAIGGY

craig <trula1@comcast.net>
- Thursday, May 6, 2004 2:04 PM CDT
Mothers Day Prayer

I Pray for you that on this special Mothers day,
God fills your heart in a truley beautiful way.
And may, He in His reach from heaven above,
Flow the wonderful family spirit, of His love.
I pray He grant, truley sweet and Angelic care,
That you may know, He is, always there.
I pray within God's great vast Love for you
In life, daily onward, In all that you may do,
You feel His love, His strength, His peace,
This Mothers Day blesses a spiritual release.

Have a Blessed Mothers Day

Chris Ullrich - Bella's Grammy <c_ullrich@msn.com, www.caringbridge.com/page/isabellaledesma>
- Thursday, May 6, 2004 1:25 PM CDT
Jack, Glad to hear your surgery went well.

Liam, did you enjoy leaving school early?

Love

Auntie Heather
- Thursday, May 6, 2004 9:07 AM CDT
Liam,

What an awesome big brother you are!! I love the sidewalk art you made for Charlie and the egg you made him brought tears to my eyes. :) You have a very special love and thank you for sharing it with others.

Many Blessings to you and your family,
love, Marceen

Marceen
near Detroit, MI USA - Friday, April 30, 2004 6:56 AM CDT
Terese,
I don't know you, but clicked on your link from the WW CAM boards. I don't know anything about the illness that took your dear son Charlie from you. Is this the same illness Jack faces? I pray for your family. My son Connor is just 3 and I cannot imagine your loss. I am crying and I don't even know your family, but your sons' images are overwhelming and powerful. Clearly you are a blessed familu.

Cindy Ragland <cragland@sbcglobal.net>
Irvine, CA USA - Monday, April 19, 2004 8:52 PM CDT
We have kept Jack in our prayers. Hope his surgery went well. You all are in our thoughts.

Lisa, Matt & family

Lisa and Matthew Plowman <plowsy@msn.com>
Minneapolis, MN USA - Monday, April 19, 2004 11:39 AM CDT
I hope Jack is healing well. I have been meaning to call but time just keeps getting away from me. I hope all went well with the surgery and I will talk to you soon.
If you guys make another trip out to the zoo and want some five year old company, give me a call and we will tag along.

Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Saturday, April 17, 2004 12:53 AM CDT
Hello my name is Jenna and I came across your page. Charlie is a very special angel looking down on all who knew and loved him. Liam and Jack are both cute boys. That was a cute picture of Jack, with the makeup on.
www.caringbridge.org/canada/jenna

Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Thursday, April 15, 2004 9:54 AM CDT
Happy Easter to all. Hope you have a nice weekend. We will be praying and thinking of you all on April 14th. I hope you know you are always in my heart.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Sunday, April 11, 2004 1:02 PM CDT

Thinking of you this Easter, Love everyone at Post Pals






viks <viks@postpals.co.uk>
- Saturday, April 10, 2004 5:53 PM CDT
Hi There.
I found you on AJ's site.
I've read your entire history and am moved by your experience. Our journey is just beginning, and I can't even express how sorry I am for your loss, and for your continued challenges. Thank you for sharing your story. You have an amazing family!!

lori hurley (www.caringbridge.com/mn/noahhurley)
north st paul, mn - Wednesday, April 7, 2004 3:49 PM CDT
Good thing I read this every week or I would never know what happens in my own family! Guess living across the alley really doesn't keep me in the loop!
Liam-I'm sure Zeus would love a little kitty to play with, so encourage the orange kitty to stay.

Aunt Alicia
St Paul, MN - Wednesday, March 31, 2004 1:44 PM CST
We have never met, but I found Charlie's page through some of the other CaringBridge pages that I follow. I just wanted you to know that my heart smiles whenever I see I picture of Charlie. What an interesting soul he must have been, and is now in Heaven entertaining the angels!

Leigh Ann Edwards <APoohFan514321@aol.com>
Bowling Green, KY - Wednesday, March 31, 2004 9:40 AM CST
Dear Liam and Jack, WE like your fancy hair do Liam. Did anyone else have one like it at school? What really interested me was what we could see through the window--was it a snow sculpture? What kind of dinosaur? Or am we just seeing things? Jack you are so cute with lipstick and vaseline. I'm sure Mommy really wanted to kiss you just then. We'll be anxious to see the new floor. Love Opa and Oma
Opa and Oma <rckiehne@smig.net>
USA - Wednesday, March 10, 2004 6:41 AM CST
I just wanted 2 let u know that me and my family r praying 4 u. God Bless You <><
Courtney Girley
- Tuesday, March 9, 2004 4:59 PM CST
im sure you must get bored of hearing it, and i wish i could find something more orginal to say, but i AM thinking of you,






Love viks from BWC and Post Pals




viks <viks@postpals.co.uk>
- Monday, March 8, 2004 6:21 PM CST
Dear Therese, You do not know me but I saw your link on the WW web pages. This past summer I read some of your journal entries. There were no dry eyes here! I spent a little time today catching up from the summer. I am glad you and your family are doing well. I never knew Charlie, nor have I met you, but your family has touched me in a special way. Much peace to you all as you continue your grieving process.
Kayla Mack <macktkz@hotmail.com>
- Sunday, March 7, 2004 3:32 PM CST
I huge THANK YOU. You are so special to me. I hope someday to be able to get together and thank you in person. I am planning on making a trip to the cities in the summer. I hope to see you then. For now, Thank you for being so great to me.
Deb www. caringbridge.com/mn/ajtoivola
gilbert, mn - Sunday, February 22, 2004 8:45 PM CST
Paul, Terese, Liam and Jack - We look forward to your updates, pray and think of you often. Lindsay is raising money through her school (March of Dimes) for premature babies and we were wondering if you could email a couple of pictures of Charlie and Jack as premies and if we could use those in her efforts to raise money. I love the way you are creating wonderful ways to remember Charlie. Liam and Jack are blessed to have parents that have the ability to talk of Charlie's life even though I'm sure the sharing hurts at times, but gives Liam and Jack the security that it is alright to talk about Charlie and his time here.
Sharon Thurman <sthurman@wowway.com>
Wayne, MI USA - Sunday, February 15, 2004 8:47 PM CST
Liam Wow !! Or as some members of my family would say ,"Holy Cow" !! What a great poem . Thank you for sharing. Hope you have a great Valentines Day. Tell your mom that I said Hi.

Cari Parry <clparry@comcast.net>
Stillwater, mn USA - Friday, February 13, 2004 9:17 PM CST
Liam, you are so talented! I absolutely love your poem. Thank you for sharing it with us. I hope that you can come and visit soon. Max would love to go bowling again. Have a great day!
Aunt Robyn <RJHennen@msn.com>
- Thursday, February 12, 2004 4:29 PM CST
Liam,
What a wonderful poem. Maybe you can write an Aunts one someday for Robin, Julie, Heather & myself.

Aunt Alicia
St Paul, Mn USA - Wednesday, February 11, 2004 2:01 PM CST
Liam, I think your poem is beautiful!! What a wonderful loving brother you are.
Nancy <njohnson54@cox.net>
Mulvane, KS - Wednesday, February 11, 2004 8:03 AM CST
Thanks Terese for the updates. You have no idea how much I look forward to them!
Heather
St Paul, MN 55117 - Thursday, February 5, 2004 7:14 AM CST
I have been checking in everyday but unable to write a single word. I have had a tough time writing or trying to make the brain work right. I do think of you all the time and feel so honored to have you apart of our lives. I love your kindness and generosity for me and the kids. I hope I can do the same for you soon. Thank you for just being a wonderful family I always love the updates. Liam you are so amazing. May God keep us safe and give us strength for each day.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Sunday, January 25, 2004 10:39 PM CST
So nice to read your updates. Your family continues to be in our daily prayers and we think of you often. I will be at the meeting Saturday morning at Childrens Mpls. Looking forward to seeing you there.

God Bless
Kellie

Kellie Janssen <kelliejanssen@charter.net>
Alexandria, MN - Wednesday, January 21, 2004 12:33 AM CST
Happy Birthday to Jack! Happy Birthday to Jack! Wow, what a milestone...2 years old! Congratulations buddy! Enjoy your special day!!


Aunt Robyn <RJHennen@msn.com>
Cold Spring, MN - Tuesday, January 13, 2004 4:58 PM CST
Charlie,

We sure did miss you on Saturday for Christmas. In your honor, everyone received their own canister of Funyons, Doritos or Cheetos. They don't make the 3D's anymore. :-( I'm sure everyone was thinking of you as we munched away.

Aunite Heather
St Paul, MN - Wednesday, January 7, 2004 1:34 PM CST
Hi guys. Although we haven't written in awhile, rest assured you're not forgotten. We think of you often, and hope that you had a good Christmas and New Year. Hugs from Kentucky!
Scott, Cathy, Thomas and Trish
Hopkinsville, KY - Tuesday, January 6, 2004 4:05 PM CST
Just stopping in to let you know that I continue to pray for you. I can't imagine how difficult the holidays are when you've lost a child. Please know that I continue to lift you up to the Lord for strength to face each day. Blessings to you in this New Year.
Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC - Friday, January 2, 2004 11:38 PM CST
Hoping you had a good new year. We are struggling but trying to do the best we can. I think of you so often. I thank you for the kindness and gifts you have given our children and me. I still hope to get together for coffee with you. I don't drive in the winter so it will have to wait for the spring. May God comfort all of us and give us peace this new year.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Thursday, January 1, 2004 9:16 PM CST
Charlie-

We most certainly missed you this year at our Christmas celebration. You would have gotten such a kick out of helping Jack and Ollie open their presents. I imagine you took part in a very magical celebration up in heaven. I bet you had better things to eat than we did at Grandma's house! Too much diet food!

We miss you so much. Peace, little man!

Aunt Robyn <RJHennen@msn.com>
Cold Spring, MN - Monday, December 29, 2003 1:50 PM CST
When we come to heaven and see you again Charlie we will find out how Christmas is celebrated in heaven. I imagine you singing with the angels along with many other children who have joined you. You would have had so much fun this year at Christmas enjoying the holiday with your
brothers and cousins plus your dad and mom, grandparents,
aunts, uncles and friends. We count as a special blessing
your daddy's boss who was so generous in letting your dad be
with you so much when you were sick. He is one special fellow. There are the special ornaments on our tree this year in your memory--the rainbow ones from Heather last year and a Teddy bear I received from a friend this year. We continue to cherish your memory. Love, Opa and Oma

Opa and Oma <rckiehne@smig.net>
- Friday, December 26, 2003 0:02 AM CST
Merry Christmas Charlie!
Love, Heather <hkiehne@hotmail.com>
- Thursday, December 25, 2003 8:13 PM CST
Terese (Paul, Liam, and Jack)

We continue to check Charlie's page on a weekly basis. It is so wonderful to read all of your entries. We miss Charlie and it is a way for us to remember him and stay connected. It is so great to open that page and have Charlie smiling at you. Matson especially likes to see Charlie's picture and think about all their holiday playtimes together. We are always keeping you in our thoughts and prayers and can't wait to see you in a couple of weeks at Oma and Opa's.

Love,
Melissa (Ross, Sammy, and Matson)

Melissa Kiehne <mkiehne@hickorytech.net>
St. Peter, MN USA - Thursday, December 11, 2003 11:05 PM CST
Dearest Charlie

I gently wrap warm thoughts of you
in my christmas prayers
For Heaven to smile on you
For Angels to watch over you
and the love of Jesus to fill your heart
Have A Merry Christmas
God Bless You And Your Family This Holiday

Have a Marry Christmas and a Blessed New Year

Chris Ullrich - Grand-daughter dx with AML M5 <c_ullrich@msn.com, www.caringbridge.com/page/isabellaledesma >
Hemingford, Ne USA - Thursday, December 11, 2003 9:36 PM CST
I continue to keep up with your updates on Charlie's website. I find your courage remarkable. My heart goes out to you, Paul, Liam & Jack during this up coming Holiday Season and the long winter to come. I continue to keep Charlie (and all of you) in my prayers.
Lisa Plowman <plowsy@msn.com>
Minneapolis, MN USA - Tuesday, December 2, 2003 10:54 AM CST
We have never met, but I found your page while checking on some other Caring Bridge families. I have been totally captivated by Charlie, and have been reading your journal of his journey. My thoughts and prayers are with you and your family during this holiday season.
Leigh Ann Edwards <APoohFan514321@aol.com>
Bowling Green, KY - Monday, December 1, 2003 2:30 PM CST
I haven't signed in so long but I still check Charlie's page every day. Even though I talk to you often I will hang up the phone and five minutes later check the page, knowing there will be nothing new written that we haven't talked about, but looking for a way to stay connected to Charlie anyhow. Also, I spend a lot of time looking in the photo album and just remembering.
I hope you were able to enjoy Thanksgiving yesterday. I thought about you and the Toivola's a lot yesterday.

Chris <chrismyrah@frontiernet.net>
Rosemount, MN USA - Friday, November 28, 2003 8:33 AM CST
Hello to all!
Just checking in as I often do (but never signing in). Want to let you know you are in my thoughts frequently.
May this Holiday season shine just a bit more brightly for you, helping ease your sadness.
Take care,
Chris

Chris Engstran <engstran@comcast.net>
White Bear Lake, MN - Tuesday, November 25, 2003 11:20 PM CST
Therese and family...
I cannot believe a year has passed without Charlie! It amazes me how I find myself drawn to check his website and see what new and amazing insights and lessons you have to share with the world. I think of Charlie and you all often and I will always remember his shining smile and his seemless boundless energy not to mention all of his wonderful thoughts and plans. One of my favorite memories was playing with Charlie on the computer after one of his infamous feeding therapy sessions (involving Resource juice and spicy crackers I'm sure) playing the dinosaur coloring game. Now, most 3 year olds would want their dinasaur to be red or blue with maybe a stripe or two, but not Charlie, he wanted his to have the harlequin design. I am a grown person and had to stop and think for a minute which pattern was a harlequin when Charlie clicks on it to color his dinosaur and with a big smile declared it was perfect and that he would bring it home for Liam buecause Liam loved dinosaurs. What an remarkable boy!

My husband and I were blessed with a little boy of our own on September 4, 2003. He (Thomas Anthony) was born full term and healthy and not a day goes by where I don't say a prayer and thank God for his gift. It amazes me how everything has changed now that I am a mom. My heart has always ached for your loss but now having a child of my own I cannot begin to imagine the pain you feel every moment of every day. I know that Charlie is looking down from heaven where he's eating spicy crackers and drawing harlequin dinosaurs and is helping me figure out how to raise a loving, happy, bright and inquisitive little boy. I only hope that I can be half the mom that you are and that Thomas will grow up to be a loving, happy, and amazing little man like Charlie, Liam and Jack.

Thank you for your lessons and the role model you are and for involving others in your amazing journey!


Tricia <ronandtricia@comcast.net>
St Paul, MN USA - Wednesday, November 19, 2003 10:24 PM CST
I was thinking of you alot today. I don't really know about what. I hope all is well. I truly hope someday we can met for coffee. I will see how the winter weather is and hopefully make another trip to Minneapolis. I would love to get together with you and Chris. I hope the pain for us becomes minimal. I have had a hard time writing because my brain still feels numb and I sure hope that eventually fades. Somedays it is so heavy (my head that is.) I can barely hold it up. Just know I think of you daily.
Deb www.caringbridge.com/mn/ajtoivola
Gilbert, MN - Monday, November 17, 2003 11:22 PM CST
I just want to say I miss the picture of Charlie in rainbow socks, as that is how I will always remember him.

I have only known your family through the internet (introduced when Robyn asked for prays while you were pregnant with Jack) but through the power of prayer and your amazing strength that shows in your wisdom, I feel I have gotten to know you.

This past summer the "June 2002 moms" were praying for another little boy. Sadly, he passed away at 12 weeks old, on Oct. 12, 2003. Even though Conner is not a child you ever got to know, I guess through all of our prayers for both boys I somehow felt they are connected.

Conner died just after the one year mark of Charlie, and I thought of them both often. In my sorrow I had a dream that Charlie was sitting there, feet dangling wearing rainbow socks, and he lifted Conner's tiny body up. It was the biggest smile as a (almost) 4 yr old boy held up a 12 week old, without anymore tubes, and carried him off to the light. This dream gave me a lot of peace knowing they are both with God, and I just thought I would share it.

May your days get a little easier and God grant you some Grace.

Take care and God bless, love, Marceen

Marceen
- Monday, November 17, 2003 11:54 AM CST
Terese,
I still come to Charlie's page very often in hopes that you have written something. What you write often makes me feel better...that I'm not "behind the curve" with my grief. :-) I miss him so much.

Can you confirm that the dashing, devastatingly handsome secret agent was in Rochester Saturday night? I believe I saw him, but he wasn't wearing the coat and hat, so I am unsure.

Heather
- Wednesday, November 12, 2003 8:25 AM CST
I haven't written in awhile. I never feel what I write makes much sense. I always like to write something that sounds half way sensible. I hope Addison and Charlie have become the best of buddies. They would make a super team. I hope you are all doing good. I will sign off before I start to ramble. Take care I am thinking of you always.
Deb www.caringbridge.com/mn/ajtoivola
Gilbert, MN - Wednesday, November 5, 2003 11:15 PM CST
Hi, Terese, Paul, Liam and Jack: Terese, you asked us all for memories and thoughts of Charlie, so: I remember Charlie being this sweet, cute small bundle of big words and thoughts and big eyes who was always anxious to share himself with everyone around him. I remember my daughter, Tessa, and Charlie really hitting it off and that day that he brought her a beautiful bouquet of dandelions will never be forgotten by Tessa or me. Terese, I never told you, because it didn't seem positive or terribly important, but I had a brother named Charlie, who looked very much like your Charlie. He was born in May 1961 and died in November 1963; I was born 3 months after he died, so I never really knew him. But I've always felt so connected to my "big brother" and once I had kids have had a hard time understanding how my parents survived his death. I'm not sure they HAVE survived it; they divorced in 1976 or so and both have "issues" whether because of our Charlie or not, I don't know. Our family never did anything to honor or remember our Charlie and rarely talked about him. We did visit his grave a couple of times -- very special memories for me. I admire all of your celebrations and remembrances of your Charlie and I'm sure he is so glad to see all of the rainbows you have created for him. Thank you for letting all of us who knew Charlie remember and talk about his special life. I really appreciate and admire all of you! Louise
Louise Portuese <lportuese@aol.com>
St. Paul, MN - Thursday, October 23, 2003 10:44 AM CDT
Happy Birthday Liam you dont know me we live in Minn. We met AJ Batman in his last days here in Fairview of Mpls WOW your brother Charlie must have been super just like AJ well HAPPY Birthday again. Lots of love to your family. www.caringbridge.org/mn/rosie
Danny
- Sunday, October 19, 2003 1:04 AM CDT
HAPPY BIRTHDAY TO YOU. HAPPY BIRTHDAY TO YOU. HAPPY BIRTHDAY DEAR LIAM. HAPPY BIRTHDAY TO YOU. AND MANY MORE....I hope you had a wonderful birthday. I have a feeling it was GREAT. Thinking of you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Gilbert, MN - Saturday, October 18, 2003 11:53 PM CDT
Happy Birthday Liam!! Allison, Justin and I will have to get over to your house soon and deliver your birthday present!! I hope you had a great time at your party, the cake looks really, really cool and the book from your Grandma and Grandpa looks almost too cool for words.

We will see you soon!!

Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Saturday, October 18, 2003 9:14 PM CDT
Happy Birthday, Liam! I hope your day was wonderful.
Leslie Lehmer - a preemie-L member <twinfirned@dullroar.com>
Jefferson City, MO 65109 - Saturday, October 18, 2003 2:44 PM CDT
I wrote this last year and it is now finally on Charlie's page.

"October 10th, 1998 - October 7th, 2002"

So young so beautiful
His love will never fade
He was full of life
Hope and happiness
A son, brother and friend
He touched everyone's heart

His mother and father
Will forever remember those words
"Diagnosed with liver cancer
He'll be okay"
The boy fought bravely
Never with a diminished smile

On the battle he kept
Through the cancer and the pain
He never gave-up
A strong little knight he'd be
The final day came
And this brave knight went home

Heaven just received an angel
A three-year-old with precious small wings
He'll be forever missed
His presence everywhere
So young so beautiful
Charlie's love will never fade

Jessica Swecker (Tina Mrazek's daughter)
Andover, MN - Wednesday, October 15, 2003 7:43 AM CDT
Hello, Ocotber 7 is my birhtday and that is the day I had my sons funeral. He died on 10-1-2003. He was 14. I am so sorry to hear about your son. I miss Dusitn so much and it has only been 11 days.
Kris, dustins mom <www.caringbridge.org/mn/dustin>
- Sunday, October 12, 2003 9:58 PM CDT
BLESS YOU GOD IS GOOD ALL THE TIME SURE LOVE GARDENING TOO.
ANOTHER DADDY
- Sunday, October 12, 2003 1:39 AM CDT
Hello, I just found Charlie's page today from AJ's guestbook. We celebrated our angel girl's 5th birthday on 8th October 2003 - she died due to Wilms Tumor on 23rd Sept 2002, just before her 4th birthday. I haven't had time to read all of Charlie's site, but will do later tonight. I will keep you in my thoughts and prayers as you too struggle with living on without your precious child.
Harri, Mum to angel Lowri 8 Oct 98 - 23 Sept 02 <timvdw@kcbbs.gen.nz>
Auckland, New Zealand - Saturday, October 11, 2003 3:33 AM CDT
I have been thinking of you alot today. I hope the day has been okay. Happy Birthday CHARLIE.
Deb <www.caringbridge.com/mn/ajtoivola>
Gilbert, MN - Friday, October 10, 2003 11:02 PM CDT
Your family is in my thoughts and prayers. I still think about Charlie. I only knew him from your updates. Which I looked at often. But as you can tell alot of us felt like we knew him. Your wonderful writing and pictures let Charlie into all of our hearts and he will never be forgotten. Everytime I plant a flower I will think of Charlie. Take care.

Candy

Candy
IL USA - Friday, October 10, 2003 10:44 PM CDT
I'm in Mankato today attending a funeral on the anniversary of Charlie's funeral....my sister-in-law, Barb Lindsay's, father, Norb Anderson passed away on Oct. 7. Norb's grandchildren spoke of his love for them and all children. Even though Norb didn't know Charlie in this life, I'm sure he and Charlie will really hit it off in heaven. Love to all the family. I'll see you on Sunday for Liam's bash.
Julie Kiehne <tjkiehne@acegroup.cc>
Mankato, MN USA - Friday, October 10, 2003 5:21 PM CDT
Charlie,

In honor of your 5th Birthday Charlie, I had a Creamy Cone!

Alicia already wrote of the day that you became an angel. I was on my way to lunch with my boss and others when she called me. I remember yelling to my boss, "It's Charlie!" and running as fast as I could back to work to meet Alicia. Rhonda (Alicia's boss & my good friend) was there to give me a hug before we left. I couldn't say anything to her. It was a long 15 minutes to the hospital. I remember it was cold and rainy that night; how your Daddy gave me numerous hugs and told me it was ok; Corrine & Flo who managed to bring supper over for all of us that night; everyone helping to rearrange my dinning room after supper and nobody sleeping.

The weather on your birthday last year was the same as it is today. Warm, sunny, and beautiful just like you.

They say time heals all wounds and now I can say it is true. I still miss you every day, but now there are fewer days, which hold tears. It's hard to believe you have been watching over us for over a year now, it feels like you were just here.

Love

Aunite Heather
St Paul, MN 55117 - Friday, October 10, 2003 5:09 PM CDT
Five years ago today, I got a frantic phone call at work. Terese was in labor and at the hospital. At 24 weeks, it didn't look good. We got the news later that night that Charlie had arrived. I'll never forget choking back the tears as I felt my own (huge) pregnant belly. Why couldn't it have been me in labor instead of Terese? We traveled to Childrens the next day to meet Charlie for the first time. He was so tiny and fragile that my heart broke. I didn't think there was any way that a baby so sick looking could ever make it. But we prayed and prayed and prayed that God would save him and let him live. God answered us by giving us four wonderful years with Charlie. Four years that I will be forever grateful for.

From his gift of gab to his fat little feet, his dandelion fluff hair to his sky-blue eyes, I miss that little guy. I wish so much that he was here today to give Oliver some lessons on being a "smaller guy" and to give Max a lecture on the official rules of the PB& J game.

Happy Birthday, Charlie. We love you!


Roby, Rick, Max, and Ollie
- Friday, October 10, 2003 10:03 AM CDT
Happy Birthday Charlie!!
Jenn Hartley - jenn4516 from Weight Watchers Board <ronjenn696@prodigy.net>
- Friday, October 10, 2003 6:24 AM CDT
As I sit here, I realize with great sadness that I never really knew Charlie. Sure, I have seen him, several times actually,( at NICU reunions, etc.), but I can honestly say that I never KNEW him. But strangely enough , I can say that I can always see him. I can see him laughing, telling stories, playing... in just the way you have described him. I thank you for your memories, for in them I can say that I do now know Charlie. Although Charlie, Seth and Kyle never got to swing together on the swings, he is that gentle breeze that helps them swing higher. Thank you for helping me get to know a wonderful boy who I hold dear in my heart.
Cari Parry <clparry@comcast.net>
Stillwater, MN USA - Wednesday, October 8, 2003 9:22 PM CDT
Dear Paul, Terese, Liam and Jack, I just wanted to let you know my heart is with you during these very memorable days. They are hard for we have to relive the day, we also have the joy of the great memories of Charlie. I didn't have the honor to know Charlie personally. I do feel close to him thanks to you for sharing Charlie with all of us. They say the Lord takes the best first. God gave you one of the best to have and be the mother father and brother etc...I feel your pain. I will be praying for strength to get passed the next several days. I hope you are able to have lots of smiles and happy thoughts. I hope there are tears of joy. I just wanted you to know I will be thinking of you alot. I am hear if you need to chat or just need someone to listen to you. God bless you.
Deb <www.caringbridge.com/mn/ajtoivola>
Gilbert, MN - Tuesday, October 7, 2003 11:29 PM CDT
Justin and Allison talk about Charlie all the time. They talk about having a friend that lives in Heaven and is he ever going to come back to visit. Allie is starting to grasp the concept a little and now whenever she sees a rainbow she tells me "Look mommy! Charlie is here saying Hello!" I mentioned this to Terese once, but one day, out of the blue Allie asked me if it would be possible for her to take a hot air balloon ride up to Heaven to visit Charlie. I had to really struggle to hold back tears as I tried to gently explain to her that while that was a wonderful idea, it just wasn't possible and that they way to visit Charlie now was in her memory, through pictures and by visiting with Liam and Jack.

We miss Charlie so much. Our thoughts and prayers are with all of you, as always, but especially during this difficult week.




Chris Myrah <chrismyrah@frontiernet.net>
Rosemount, MN USA - Tuesday, October 7, 2003 9:41 PM CDT
Dear Paul, Terese, Liam and Jack
Please know you are in our prayers. My family has followed your journey, and the way you have celebrated Charlie’s life is such inspiration to all of us. Thankyou for sharing Charlie with us, he was such a beautiful little boy. Whenever I see a rainbow I think of Charlie. God Bless you all.
Regards, Internet friends from Australia
Helen, Jeff and our dear son James

Helen, Jeff and James <najelen@ois.net.au>
Perth, WA Australia - Tuesday, October 7, 2003 9:04 PM CDT
Thinking of you all this week. We didn't have the pleasure of knowing Charlie, though we feel as if we did! Our thoughts and prayers are with you.
Brian, Sara, Ryan, Elizabeth and Sophie

The Phillips' <samatzoll@charter.net>
Farmington, MN USA - Tuesday, October 7, 2003 8:04 PM CDT
This is a bitter sweet day. A day of thankfulness for a grandson who stole our hearts (as does Liam, Jack, Megan and
Matthew). A Savior who gave us the promise of eternal life and now Charlie is living in heaven partaking of the heavenly life we are looking forward to some day. His church for the prayer service the night before his surgery, the prayer service around his bed sending him off to heaven, and the support in the hospital from members and clergy. For the meaningful powerful sermon at Charlie's funeral. For Paul and Terese to rock him into heaven free of
all the tubes and machines. To Carol who moved in and kept the home fires burning so Paul and Terese could spend time at the hospital without worrying about Liam and Jack. For a son and daughter-in-law who not only kept Charlie as a priorty, but did not forget Liam and Jack and did special things for them in this time too. For Heather and Alicia for taking time off from work when Terese was on bed rest waiting for Jack to take care of Charlie with his special needs. For all the therapists who worked with Charlie. For
Dr. Messenger and the kindness and love he showed (and continues with following Jack) to Charlie and the rest of the family. For all the others who were part of Charlie's short life--doctors, nurses, housekeepers, pharmists, techs, etc. To all of our families and friends for the love and support you have given each of us. To all the people who have read the web site and kept us surrounded in prayer. Charlie was so special--he was talking in sentences at 18 months. He had books memorized and knew when his Oma read the wrong word (on purpose!) and had to correct her. His riding the tractor (riding lawn mower) with his Opa and getting to "drive". His simple joy in so many things. Wanting olives to eat the last time he came to see us. How his face puckered when he tasted a dill pickle. When he saw me on the day of surgery and joyously said "Oma, I'm having surgery!" Oh, Lord Jesus, the tears still come, but amid them peace knowing Charlie is with You
Thank you Lord, for the blessing of giving us Charlie for his short time here on earth. We pray for strength and courage for Paul, Terese, Liam and Jack this week in particular. We know You continue to bless the memory of Charlie through this website. We thank and Praise You for all Your goodness. Amen

Opa and Oma Kiehne
Austin, - Tuesday, October 7, 2003 6:08 PM CDT
I remember going into work and thinking about Charlie the whole time. My co-workers and I would read Charlie's update so that I wouldn't have to keep repeating how his night went to everyone. Then came the moment when I was in a meeting with my leader (Rhonda) and a co-worker (Paul) when I received a page with a St Paul number on it. That was very strange to me as all my pages came in with only extensions on them. I called the number and there was Paul on the other line telling me to come to the hospital to say goodbye to Charlie. I rushed from the room where to tell Rhonda that I had to go right now. I ran to my desk and with hands that trembled so much I called Heather (my sister) to tell her we had to go to the hospital. Rhonda had been behind me the whole time and she put her arm around me as we walked to the entrance where we met Heather. Heather and I were both crying so hard when we met, that all Rhonda could do was hug us both. That short drive from Minneapolis to St Paul felt like it took forever. All the way we just kept telling each other that Charlie was going to make it, that he had been in worse situations and this was just another hurdle. We arrived at the hospital and fortunatly the staff did not say anything to the fact that there were too many people in the room. I am greatful to the fact that there was someone from their chruch there. I can't remember her name, but she helped me so much, without making me feel like she was helping me.

That day was the longest day of my life.

I know that Charlie is in a much better place now, but I think about him everyday wishing that he was here. He was a wonderful nephew and I'm so greatful for all the moments that I had with him. I was lucky enough to babysit for him & Liam on the Saturday before surgery and I am so thankful for that time with him. We watched Kermit the Frog about his days in the swamp and Charlie & Liam laughed and laughed during the movie. I can hear both of them when I think of that moment.
I miss you & love you so much Charlie and am so thankful for the time that we did have together.

Aunt Alicia
St Paul, MN - Tuesday, October 7, 2003 3:55 PM CDT
My two hour drive to St.Paul was quiet last year. The time sped by as fast as the highline poles. My mind was thinking and praying for Charlie the entire way. Once there, the strength and love of family surrounded Charlie one more time before he found his way Home. We mention Charlie in our prayers nightly. Our family remembers the lost of a dear little boy last year. He will be forever loved.
Tim Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN - Tuesday, October 7, 2003 11:51 AM CDT
Your family is in my prayers today and everyday! The pictures of Charlie are sooo cute, he truly is an angel - those blue eyes!! I hope that your family is healing from your loss of Charlie and that his memory will continue to touch others.
Jenn Hartley - jenn4516 from Weight Watchers Board <ronjenn696@prodigy.net>
Bensalem, PA USA - Tuesday, October 7, 2003 8:41 AM CDT
Dear Terese, Paul, Liam and Jack--I'm thinking of you during this surreal, difficult time. Not sure if you got my card/check but hope it got there. I'm looking for a buffalo stamp but haven't found one in the stores here yet. Love, Margot
Margot <mmason@ac.wesd.k12.az.us>
Phoenix, AZ USA - Monday, October 6, 2003 10:30 PM CDT
Paul, Terese, Liam and Jack,

I have silently kept up with your lives for the past year by regularly checking Charlie's page. You continue to amaze me at the strength that you to display. Charlie's life was an incredible one which continues to touch so many people.

I have seen through various links that you have reached out to others with such comforting words. I hope that you are able to find some comfort in the support that all of those around you are trying to give. While I don't have any new words to express the sorrow that I feel for you, know that all of you are never far from my thoughts - most especially this week.

John, Kim, McKenna, Rachel and Allie

Kim Dennstedt
Burnsville, MN - Monday, October 6, 2003 5:05 PM CDT
Hello my name is Jenna, and I was born with a rare bone disease. Sorry to hear about your loss. It sounds like Charlie is a special angel.
My page: http://www.matmice.com/home/fighterandchampion

Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Sunday, October 5, 2003 4:25 PM CDT
Hi everyone. I will be thinking of you all alot these next couple of weeks. I wish I could be there to give you a hug and support. You all have been so great to us. I wanted to let you know that I updated Addison's pictures and the last one is Aj in the batman outfit you sent him. He was so excited when he got it. Thank you for that. I hope we can someday get together for that coffee and visit. I will be making trips to the big city. I am so glad you had a great vacation. My prayers are with you. If you ever need a friend to chat with I am here.
Deb (Batman's mom) <www.caringbridge.com/mn/ajtoivola>
Gilbert, MN - Thursday, September 25, 2003 11:50 PM CDT
We think of you often... praying for you always. What special children!

Kellie Janssen

janssen <kelliejanssen@charter.net>
Alexandria, MN - Thursday, September 25, 2003 9:49 PM CDT
He was a very handsome boy. I will always remember his name even though I didn't know him. My birthday is October 7. I know they always say that God only takes the best. I know that doesn't ease the pain. My son is in the hospital and has been here for 21 weeks now. He doesn't have liver cancer but he has had liver problems and many other complications. We have been lucky that we did not lose him yet. We have come close. I know there is a real possibility but right now I thank god because I still have him.
Kris, Dustins mom <www.caringbridge.org/mn/dustin>
- Monday, September 22, 2003 9:20 PM CDT
He was a cutie!! I'm sure he is playing in the clouds.
Keeping you in my thoughts.
www.caringbridge.org/mn/marisa

Marisa-liver transplant 5/88,Fairview University <sisterpiranha@yahoo.com>
SSP, MN - Friday, September 19, 2003 9:52 PM CDT
I'm very glad you're getting some time away. You remain in my thoughts and prayers during these difficult days. Blessings.
Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC - Wednesday, September 17, 2003 2:01 PM CDT
I just wanted to stop and thank you for all your support. I hope to still meet you all soon. I will be making trips to the Mpls. St Paul area. I hope you don't mind but I put in with Addison the wonderful costume you gave him. I have a picture of him wearing it. He was so excited. I know he and Charlie are playing together and maybe even discussing there many surgeries and chemos. Ashley and Austin said they thought maybe Addison was telling God all about Batman. Thank you again. I hope you have a great trip and get to actually take it this time. God bless. Please keep in touch.
Deb <www.caringbridge.com/mn/ajtoivola>
Gilbert, MN - Monday, September 15, 2003 1:45 AM CDT
Terese, Paul, Liam and Jack,

Charlie's story has touched me deeply. I've spent the evening reading every word and have marvelled at the immense strength you all have shown throughout this nightmarish ordeal and in the time since Charlie's death. You are truly an inspiration to any family going through a crisis with a child. My own daughter is at risk for hepatoblastoma (Beckwith-Wiedemann Syndrome http://www.geocities.com/beckwith_wiedemann/) and she was also a preemie (born at 27 1/2 weeks). I was shocked to read that preemies are at risk for hepatoblastoma. In the 4 1/2 years of her life, in all the extensive research we have done into her BWS, we have never had anyone tell us that "oh, by the way, her prematurity also adds to her risk for hepatoblastoma." So thank you for the heads up. Although she is being screened 3-monthly for abdominal growths, her twin brother is not (since he doesn't have BWS)! You can be sure we'll be looking into this now! You all will be in my thoughts and prayers for a long time to come. Thank you so much for sharing Charlie with us, allowing us to see into your hearts and emotions and leaving us with a sense of wonder at the strength of love and endurance with which your family has gotten through these past 15 months.

Julie <juliebeja@yahoo.com>
- Friday, September 12, 2003 5:13 PM CDT
Hi everyone. I am so sorry I haven't written to you for awhile. I have been so tired out at the end of the day. I have been checking in and think of you all daily. You have been so wonderful to all of us. Thank you for all you support. I hope school is going great for you Liam. Have a great week and I will write again soon.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Sunday, September 7, 2003 8:05 PM CDT
I do too remember Charlies 1st day on the bus. I was Charlies bus aide he wasn't nervous like the other children were. I check in here every week or two. I think of Charlie often. He loved school and his friends on the bus. Love and peace to all of you.
Deb Kinsel <debk242@hotmail.com>
St. Paul, MN USA - Wednesday, September 3, 2003 2:00 PM CDT
I hope in Sept. everything goes off with no problems. You know what they say about having to wait. It will be even better. It's worth the wait. You are going to have such a great time. I can't wait to hear about all the fun you had. Happy Anniversary!
Deb
Mpls., - Thursday, August 21, 2003 11:37 PM CDT

Random Acts of Kindness

Dana Sanford <pooh_n_tigger2002@yahoo.com>
Jackson, MI - Tuesday, August 19, 2003 0:01 AM CDT
Hi Charlie I am glad to see things are going well for you. Just wanted to drop in and see if you were interested in visiting Smile Quilts for an online quilt made just for you.
Just click on the graphic below to check Smile Quilts out, we would love to make you one!



Angel Chris & all your friends at Smile Quilts
chrisrusso_@hotmail.com
- Tuesday, August 12, 2003 9:33 PM CDT
Jack, Terese, Liam and Jack,
You are such a wonderful family. Liam you are an artist (the best)Addison loved the card you drew. You are so special. I hope you are enjoying the rest of the summer.

Deb <www.caringbridge.com/mn/ajtoivola>
Mpls, MN - Monday, August 11, 2003 11:44 PM CDT
Jack, Liam, Terese & Paul;

Thanks for the update on the Relay for Life. The pictures are great and I was there with you in spirit. I do plan on being home on Saturday with no new "exciting" tales to tell. Can't wait for a Liam hug!!

Love

Auntie Heather
Hong Kong, China - Thursday, August 7, 2003 3:32 AM CDT
Terese--I saw the link to your website on the Weight Watchers board and decided to check it out....what a BEAUTIFUL job you have done with it and sharing the lives of your family. I appreciated every word.

God bless.....Kim, "kimemm" from the WW board

BTW....I am a 'former' Child Life Specialist....I worked at Johns Hopkins for a time before returning home to the Midwest, and then going into Social Work after getting my Master's. I always like hearing about a family's positive experience with the Child Life team at their hospital. :)

Kim
MO - Wednesday, August 6, 2003 0:11 AM CDT
I saw Charlie's website on the Weight Watchers Website. What a remarkable little boy. And, what a remarkable family. May God bless each and everyone of you and I'm sure Charlie is watching you always. My heart is with you all.
JoAnne <us4yankeefans@aol.com>
Medford, NY USA - Monday, August 4, 2003 6:05 PM CDT
I just stopped in to let you know I will be in spirit walking with you at the Relay for Life. I wish I could be right beside to honor a little boy named CHARLIE. He and your whole family are such a great part of my life. I have been touched to the core by you all. I thank God everyday for letting our paths cross. Soon we will finally get to meet each other. My thoughts will be with you and Charlies Team. God is Great.
Deb
Mpls, MN - Thursday, July 24, 2003 8:14 PM CDT
Paul, Terese, Liam & Jack;

Good luck on Friday night with the Relay for Life!! Liam...will you walk some laps for me? I am sorry that I won't be there to participate, but I will be there in spirit. Right now it looks like I will be home as scheduled. Miss you all...even crabby Jack! :-)


Auntie Heather
Manila, Philippines - Wednesday, July 23, 2003 9:25 PM CDT
My heart is filled with joy from reading your update. I am so happy with Jack's AFP results. I can't wait to meet you all even tho I feel like we are all family is some way. I'm not sure I'll be able to sleep tonight the joy is so overwhelming. God is Great.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Sunday, July 13, 2003 11:04 PM CDT
Saw your website on the Weight Watchers community threads. What a beautiful way to honor and remember your son. You sound like a remarkable person and that you have a loving family.
Leslie
Plymouth, MA - Thursday, July 10, 2003 3:14 PM CDT
I'm very glad you're enjoying your summer! It's been a hot one lately! How is Charlies Rainbow Garden coming along? Bright and beautiful I hope! Take Care!
Jenn Hartley - jenn4516 from Weight Watchers Board
Philadelphia, PA USA - Thursday, July 10, 2003 9:11 AM CDT
My heart breaks for you and your family. Your journal is so well written, I can see how very very special Charlie was! I hope all of Jack's test results come out good.
Loozing10 from the Weight Watchers Board
- Tuesday, July 8, 2003 10:50 PM CDT
We may be intested in the Cancer society event at the end of July, to run and/or pledge. Both Matt and I have been running up a storm this summer. Let us know more about the event. However, we do leave on Sat., July 26th to go on vacation. As always, you are ALL in our thoughts.
Lisa and Matt Plowman <plowsy@worldnet.att.net>
Minneapolis, MN USA - Tuesday, July 8, 2003 5:55 PM CDT
Just wanted to let you know that I continue to check in on you guys and think of all of you often. My twin sons (who turned 5 this week--so close in age to Charlie) also love tomatoes, and this year we planted our tomato plants in memory of Charlie and in honor of Liam and Jack, three bright, brave and remarkably strong boys. I think of all of you as I watch them grow. Wishing you a laughter-filled summer!

P.S. I have to admit, I've never read Moby Dick. Great job, Liam!


Mother in Illinois
Chicago, IL USA - Wednesday, July 2, 2003 3:01 PM CDT
I came across your website from the WW boards, and after reading some of your diary entries, I just want to tell you that you are a wonderful family and Charlie was lucky to have you. I understand some of the pain, my niece was diagnosed with AML (Accute Myelogeneous Leukemia) at five months old. She is now a beautiful 19 months old girl, and is in remission. I hope you can find peace in your hearts.
nora150165 from weightwatchers
- Monday, June 30, 2003 0:04 AM CDT
Terese and Paul,

I have visited Charlies site many times. After reading the latest entries, I noticed FAP mentioned. We lost my grandson, Zack, 13 days after you lost Charlie. He was born at full term and was a very healthy baby. He was dx in Feb. 2002 with stage 4 Hepatoblastoma. My daughter found a lump in his abdomen. His AFP level at dx was 2,300,000. His father has a history of FAP. Zack's baby brother Jake, was born just 3 months before Zack passed away. He is monitored closely every 3 months with AFP tests. Was FAP in your family history also? I have only come accross one other family that has that link to Hepato. If you ever have the time, please e-mail me. Your family is forever in my prayers.

Beth Boyer <Bethcountry54@aol.com>
Joliet, IL USA - Thursday, June 26, 2003 8:21 AM CDT
Terese...
Wow, one year! I cannot even believe how much has happened in one short year. It seems like only yesterday Charlie came into see me and you said that Charlie had a strange lump on his belly. Who in the world could have guessed the journey life has taken since then?!?

It was so great to hear from you the other day, I think of you all often and I still have my Charlie pictures on my desk of finger painting and proudly displaying finger tips of black olives. I can't help but find comfort in knowing that Charlie is up in heaven looking down and keeping an eye on everyone. As my husband and I prepare for the birth of our first, I hope and pray that I will be able to be half the mom that you are! I can just see Charlie's up in heaven giving our baby pointers on the fun of rainbow socks, the wide vast world of the dinosaur, and more importantly how to capture the heart of people he/she's never even met!

My thoughts and prayers are with you all...

Tricia <tricia.armstrong@childrenshc.org>
St Paul, MN 55105 - Tuesday, June 24, 2003 9:36 PM CDT
My heart breaks for you and our family and the loss of your beautiful, precious Charlie. I understand your pain and wish I had some magic to ease your grief.

I pray God will draw close and fill your hearts with peace and faith but most of all - hope. You will hold him again one day in a world much better than this, but there it will be forever.

Please write me if you ever need to talk.

With love,
Judy
http://www.catchanangel.com

Judy <tnderheart@yahoo.com>
TN - Tuesday, June 24, 2003 3:09 AM CDT
Just checking in to say my thoughts are with you consistently. Here in Arizona, our newspapers quaked with yet another stumbling leader, Bishop O'Brien, charged with a fatal hit and run. When the Santa Fe Bishop arrived to take over, headlines read: "HOPE AND HEALING". That's what you all need. Love, Margot
Margot <mmisfit@webTV.net>
Phoenix, AZ USA - Monday, June 23, 2003 9:47 AM CDT
Terese and family,
My name is Kellie Janssen and I worked on the Life after the NICU with you. I think of you all very often and when I was reading your site, I read something that you have mentioned a few times... Charlies cancer is more common in preemies. Terese, you seem so educated on what these preemies can face after the NICU and I would like to receive as much info on this as possible. I am so sorry for the loss of Charlie and continue to pray for your family. Hope to hear from you soon.

Kellie
www.caringbridge.com/mn/ariannajo

KJJ
Alexandria, MN - Monday, June 23, 2003 0:13 AM CDT
WOW!!You are such an amazing person,(family.) I hope you know how important you are to so many of us. We gain strength from you. Thank you for sharing your memorize, thoughts and feelings.
Deb
Mpls., MN - Saturday, June 21, 2003 10:40 PM CDT
We have continued to check in on how you are doing. We keep you in our thoughts and PRAYERS.
Lisa and Matt Plowman <plowsy@worldnet.att.net>
Minneapolis, MN USA - Friday, June 20, 2003 1:30 PM CDT
Thinking of you guys always, and especially so on this dark anniversary of Charlie's diagnosis, and with the current uncertainty about Jack's condition. We'll keep the prayers coming from here in Kentucky...

Liam, your accomplishments are pretty cool and impressive, and with all that you and your family have been through lately, they're even more amazing. You should be very proud of yourself!

Hugs to all of you from all of us.

Scott, Cathy, Thomas and Trish
Hopkinsville, KY - Thursday, June 19, 2003 4:52 PM CDT
Thinking of you!
Chris Engstran <engstran@comcast.net>
White Bear Lake, - Thursday, June 19, 2003 4:24 PM CDT
Thinking of you today on this one year anniversary....
Chris <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Thursday, June 19, 2003 8:37 AM CDT
Great garden. Beautiful family. Charlie is pleased.
Margaret, Dick, Lisa, Madeline & Megan <dickmarg@msn.com>
North Aurora, IL USA - Tuesday, June 17, 2003 11:34 PM CDT
i thought i never would go through something like this. i didnt realize how many more families are in the same situation.
theresa bozarth <tbozarth79@comcast.net>
brownsmills, nj new jersey - Monday, June 16, 2003 9:44 PM CDT
Hello my name is Jenna, and I came across your website. I just wanted to share with you my webpage. It is an inspirational webpage about my struggles with my health. I love encouraging others so I though that visiting my site might encourage you.
My webpage is: http://www.matmice.com/home/fighterandchampion

Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Monday, June 16, 2003 0:58 AM CDT
Congratulations to Liam for completing first grade. I'm so glad to hear about your love of reading, books are a magical key to the entire world, maybe someday you'll even write one. Good luck on becoming the first marine-bioligist/barber that serves post-haircut ice cream cones in summer and chocolate malts in winter!

Jack you just keep eating and playing and growing and listening to your big brother Liam... one tip, keep the dirt below the chin.

Terese and Paul, you two amaze me - here's a big wish for a nice, dull, uneventful summer full of lazy days for picnics and cloud watching and no cares or worries.

P.S. Air Bud Spikes Back comes out on DVD/Video June 24 - Liam and Jack can see their 2nd-cousin-in-law, Ernst, as Phil the security guard. Next summer it'll be Scooby Doo 2 in the theatres! Rooby Rooby Roo!

Lea & Ernst <leharth@shaw.ca>
Vancouver, British Columbia Canada - Sunday, June 15, 2003 11:35 PM CDT
Your Dad let us know that things are happening up there with you and we only hope and pray that it is nothing serious. Keep us informed. Our thoughts and prayers are always with you.
Aunt Sandi, Uncle Doug <sandi@sandisuddaby.com>
Sarasota, FL USA - Sunday, June 15, 2003 9:36 PM CDT
I am thinking of you and saying lots of prayers for precious Jack. You are amazing, strong and so caring. You give me the strength and courage to go on. I thank you from the bottom of my heart. God bless you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Saturday, June 14, 2003 7:26 PM CDT
I saw your link in the Weight Watchers boards and wanted to see what it was about. As a mother of a 3 year old boy, a 12 month old boy and pregnant again, I am weeping for you. I can't even imagine but what a strong little boy. I read some of your journal and Charlie was so lucky to have parents like you. I do believe in heaven and I can't wait to meet Charlie one day.
Julie Brandon <Lilcalesparents@cs.com>
Lexington, SC - Thursday, June 12, 2003 12:43 AM CDT
Liam, What a great job you have done. I hope I will be able to met you in the near future. I am so proud of you. Such a wonderful young boy you are. Have a great summer with lots of fun.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Tuesday, June 10, 2003 11:41 PM CDT
Liam,

Congratulations on your last day of school! I bet you're excited about having the whole summer off. Max is looking forward to seeing you again when you come to stay at Grandma's. Don't forget to bring you swimming trunks!

Robyn <RJHennen@msn.com>
- Tuesday, June 10, 2003 11:00 AM CDT
Wow, Liam you are reading a book that I have tried and never could get farther than the 2nd chapter. Great job, maybe when you read a Tale of Two Cities you can tell me what it's about.
Aunt Alicia
St Paul, mn usa - Tuesday, June 10, 2003 8:17 AM CDT
Just wanted to tell Liam congrats on finishing the first grade. Enjoy your summer. Liam I'm really impressed with your reading WOW Moby Dick. One of my favs. Enjoy...{{HUGS}} Athena
Athena
TN - Monday, June 9, 2003 11:24 PM CDT
I hope you guys are doing well and I'm sure Charlie is still around your house! Over the past few years, since having my 4 year old DD and 2 year old DS, I've learned that things happen for a reason. Whether it be good things or bad things, it all comes together in the end. Charlie is truly an angel who is still touching peoples lives.
Jenn Hartley <jenn4516 from weight watchers!!>
phila, pa usa - Monday, June 9, 2003 9:51 AM CDT
I know what it is like to have lost a child. My heart goes out to you. My daughter Dyandra lived for 27 days and I have so many memories its is unbelievable. However, you have years of memories to warm your heart for an angel was sharing your heart,home and lives. Charlie was needed, he had to go. I lost Dyandra last year January and that is after trying for seven years to conceive. She was seven months when I had her and she was only two pounds (I had severe pre-eclampsia) in Trinidad our facilities here is so poor for an island that is so rich in mineral resources that I stood by watch her wither away. She was in an incubator all her life and I held her twice. I was with her everyday after I came out of my comatose state but I still have so much regret and hurt still inside. I am thankful however that I am able to go on. I really hope that you would email me when you have some time as it would be nice to hear about Charlie from his mom and dad. This is the very first time I have been on a website like this and the tears are flowing like crazy. I had a special bookmark printed for Dyandra's funeral and if you reply I would certainly like you to have a copy, the words of this poem really comforts me. By the way my daughter's dad name in Davey, he works on a oil rig of the coast of Trinidad but he came home for her birth and stayed with her until she died. He is at work right now and I anticpate I will see him next two weeks. So really I am all alone most of the time. If you feel up to it please email me would love to hear about the joys you experienced with Charlie.
May god continue to bless and take care of you and your family.
Denise Dattadeen - Nancoo

Denise Dattadeen - Nancoo <denise_nancoo@yahoo.com>
Freeport, Trinidad W.I. - Sunday, June 8, 2003 11:07 AM CDT
So sorry for your loss, but I am happy to have made contact with you and yours. Your advice about i/c has made me feel so much better about the whole idea. Your son will never be gone from your hearts and memories...keep them alive.
Thank you

Suzy <suzthebrit@aol.com>
Philadelphia, PA USA - Friday, June 6, 2003 9:54 PM CDT
God bless you and your family. As the mother of three young children, my heart aches for you. Your son is not gone - his spirit will be with you all forever.
Maryellen Schissler
- Friday, June 6, 2003 1:07 PM CDT
my prayers are with you and your family...thank you for reminding me what is really important in life. I am on my way home to hug my three year old son. Thank you for sharing your story.
Christina
Puyallup , WA USA - Thursday, June 5, 2003 9:55 PM CDT
I read about your website on the Weight Watchers website. Your story is so touching. As a parent I often wonder if I would have the strength if something happened to one of my children. I am finding that God gives you that strength and helps you through. I know a little girl who is at Children's who has Wilm's (sp) tumor. She turned three on June 2. Her tumor ruptured inside of her kidney and after the removal of that kidney her other one has not started functioning. Her parents and brother are being so strong. Please pray for her. It really hits close to home when you know people that this happens to. We have to say thanks for all of our blessings everyday. May God continue to give you strength as you remember Charlie. He sounded like a wonderful little boy. Charlie must of touched many lives in his short time here on Earth. God Bless your family.
Jana
Waskish, MN - Thursday, June 5, 2003 9:52 PM CDT
What a beautiful garden!
I think of you often.

Chris Engstran <engstran@comcast.net>
White Bear Lake, MN - Thursday, June 5, 2003 3:39 PM CDT
Sorry I haven't signed in for awhile. I have been here loyally everyday, just to tired to say anything. I love the new pictures. The front picture is wonderful. I hope to get together really soon. Thank you for all your support it means so much to me. I will be in touch soon.
Deb
Minneapolis, MN - Thursday, June 5, 2003 0:27 AM CDT
I admit that I don't get by your page that often because I mostly keep up with Caringbridge pages of families that are dealing with cancer, bone marrow failure disorders or other illnesses requiring bone marrow transplantation. But, the Lord did touch my heart with your story and I am so sorry for all that you've been through. I can only imagine your pain and I want you to know that you are in my thoughts and prayers. I don't say that lightly. As I am signing in now, I am praying that the Lord touch you in a special way and continue to let you know that He is there for you in everything that you face including the awful loss of your child. God bless!
Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC, - Sunday, June 1, 2003 5:48 PM CDT
My name is Joe and I have just recently lost our baby son Callum-Lewis born at just 24wks and 2 days weighing just 730grams. He had nine precious hours with us but sadly didn't have the strength to survive. I can only thank him for his courage and I will always, always love our little man. God be with you and rest in peace my little solider... Mummy xxx
Joanne Elizabeth Sinden-Moodie <muttli@supanet.com>
Thetford, UK - Sunday, June 1, 2003 4:00 AM CDT
hi my name is tanya and i am a 17 year old grade 11 student i stumbled over your website while i was working on a paper on premature babies. well i just wanted to say that your story touched me very deeply it made me think of the times i spent with my sister becky who died of cancer 8 years ago from a brain tumor. She was a little monster as my mom used to call her and my grandma always said she should have been two boys. i know how precious life is now and i know what it is like to lose somebody you love. i can only imagine the pain that your family must have endured but it is obvious that you have tons of support which is terrific! i just wanted to say that charlie sounded like an amazing kid that touched a lot of people's hearts i'm sure he will be missed deeply. take care.
Tanya Dolan <psychotic_spaz@hotmail,com>
grafton, ontario canada - Saturday, May 31, 2003 8:04 PM CDT
HI, I HAD MY DAUGHTER AT 25 WEEKS SHE HAD MANY ROUGH TIMES, BUT NOW IS ON THE WAY:) SHE STARTED OFF AT POUND OZ AN NOW IS 2 POUNDS AND ON HER FULL FEEDINGS. TODAY THEY REMOVED ALL HER IV'S WHICH IS SO GREAT I AS WELL GOT TO START KANGARROING HER FOR THE FIRST TIME. DESTINY IS KNOW 48 DAYS OLD!!!!!
ANGELA <ANNIE_CHERY@YAHOO.COM>
VERO BEACH , FL USA - Saturday, May 31, 2003 3:52 PM CDT
I am sorry about your loss. I had premature twins on November 20, 2002, born at 24 weeks.My son almost did not make it after having three surgeries before he was a month old and my daughter has cronic lung disease. They are 6 months old now, after overcoming many obsticles. I can't imagine my life without both of my children, you are truly a strong person. God bless you.

Nicholette Findley
Albuquerque, NM USA - Saturday, May 31, 2003 0:08 AM CDT
I am so happy to see the picture of Charlie and his tomatoes again. I think that picture is so precious -- just like Charlie. All your boys are good looking guys. Liam is quite the creative one -- I was impressed with all of his performance ideas and his healthy self-confidence. Take care and know that you continue to be in my thoughts and prayers.
Kim Rutherford <kimruth1@utk.edu>
Knoxville, TN USA - Wednesday, May 28, 2003 12:13 AM CDT
WELL I AM REALLY SORRY OF THE LOST OF MY COUSIN I DID NOT NO BUT I MA SRY 4 HER LOST THIS IS A STORY ABOUT 3 OF MY COUSINS THE FIRST ONE IS THE BOY HE WAS BORN 2LBS 11OZ,HES DOING GOOD NOW, THE SECOND CHILD WAS A GIRL NAMED MORGAN SHE WEIGHED 1LB 2OZS AND SHE WAS STILL BIRTH, AND LAST BUT NOT LEAST WAS STARLA SHE WAS 13OZS WHEN SHE WAS BORN AND SHE WAS ON OXYGEN AND A G TUBE AND SHE HAD A GRADE 4 BLEED WITCH I AM GLAD IT COULDNT OF BEEN MORE THINGS WENT WRONG WITH HER BUT SHE IS DOING REAL GOOD SHES 9 MONTHS NOW AND ONLY LOOKS LIKE SHES 3 MONTHS. THANKS IF YOU WANNA HAVE A CHAT EMAIL ME AT BRATTYTMMYGRL90@AOL.COM OR IM ME ANYTIME WHEN I MA ON THANKS 4 UR TIME.
RACHEL <BRATTYTMMYGRL90@AOL.COM>
WINTERHAVEN, FLA AMERICA - Sunday, May 25, 2003 10:16 PM CDT
I'M REALLY SORRY ABOUT YOUR LOSS,NOBODY KNOWS WHY THINGS HAPPEN BUT THEY HAPPEN FOR REASONS.I HAVE A PREMATURE SON THAT WEIGHED 2LBS 11OZS. I HAD A GIRL NAMED MORGAN BORN AT 26 WEEKS WEIGHED 1LB 2 OZS .SHE WAS STILL BORN.I HAD A GIRL NAMED STARLA 8-17-02 , SHE WEIGHED 13OZS AT BIRTH SHE IS VERY LUCKY TO BE HERE . AND I THANK GOD SHE HAD A GRADE 4 BLEED, G- TUBE, BUT ALL IS DOING WELL. IF ANY ONE HAS A STORY LIKE THAT AND WANTS TO TALK E-MAIL ME I WILL LISTEN.
STARR TWIDDY <STARR772@AOL.COM>
WINTERHAVEN, FL USA - Saturday, May 24, 2003 12:47 AM CDT
I stumbled across your web site and I wanted to say how much your story has touched me. I have preemie twins that were born 10/3/02 and weighed 2 lb 1 oz and 2 lb 7 oz. We also have a Caring Bridge web site at www.caringbridge.org/al/ebbert. I just wanted to tell you that I admire your family's strength and perseverance to overcome such tragedy. You and your family will be in my prayers. God Bless!
Kristine Ebbert <kebbert73@yahoo.com>
Foley, AL - Friday, May 23, 2003 8:17 PM CDT
I am so sorry I haven't been signing in as much as I should. I do check every night. I love the new pictures. What handsome boys you have. We have been running left and right to the end of school field trips, etc...Talk to you soon.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Thursday, May 22, 2003 5:47 PM CDT
i had a premature baby at 25 weeks and she weighed 1 lbs 9 oz. your story has touched me and i want to say god bless you and will be in my thoughts and prayers. i hope that all is well
jamie <jamie_frodsham@yahoo.com>
hyde park, ut usa - Wednesday, May 21, 2003 9:56 PM CDT
I could not tell the difference between Charlie on the main page and Jack on the 2nd and I'm their aunt. It is strange having Jack with so many of Charlie's traits without Charlie physically giving them to him. He must be getting them in his sleep from Charlie.
Aunt Alicia
St Paul, MN USA - Wednesday, May 21, 2003 8:10 AM CDT
Hi!!!I have been thinking of you alot. Just wanted to say thank you for all your support. It means so much to me. Thank you. Hope you have a great week. Addison is feeling better. God bless.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Sunday, May 18, 2003 10:29 PM CDT
I AM A PARENT OF NOT ONE BUT TWO PREEMIES, I DO KNOW THE HEART ACHE INVOLVED. MY DAUGHTER, WHO WILL BE 10 YEARS OLD THIS JULY 4th. HAS BEEN DIAGNOSED WITH CERABAL PALSY, SHE HAS HAD TWO MAJOR SURGERIES. SHE IS DOING FINE NOW, BUT THE ROAD IS STILL LONG. MY OTHER DAUGHTER, IS THE OPPOSITE, SHE WAS A C-SECTION BABY, BORN AT 32WEEKS GESTATION, I DON'T KNOW WHAT THE DIFFERERENCE WAS, MAYBE THE LACK OF ATTENTION THE DOCTOR GAVE ME WITH MY FIRST, I DO BELIEVE SHE SHOULD HAVE BEEN AN EMERGENCY C-SECTION, EVEN THOUGH SHE WAS BORN AT 35 WEEKS, SHE WAS ALREADY IN STRESS MODE, AND WAS DELIVERED BY THE HEAD NURSE THAT UNFORGETABLE NIGHT, WHEN I THOUGHT I WAS GOING TO LOOSE MY BABY. THAT STILL HAUNTS ME, THAT'S WHY FINDING THIS SITE IS KINDA COMFORTING TO ME, THERE IS STILL ALOT OF FEARS I HAVE INSIDE, THAT'S JUST WHERE I KEEP THEM, NOT EVERYONE UNDERSTANDS WHAT A MOTHER GOES THROUGH. I AM SORRY FOR THOSE OF YOU WHO HAVE LOST YOUR LOVED ONES. MY PRAYES WILL BE WITH YOU ALL.MY SECOND DAUGHTER IS PERFECTLY FINE, NO TYPE OF DISORDER IS FOUND, SHE IS 5 YEARS OLD AND FULL OF LIFE, ACTUALLY, BOTH DAUGHTER'S ARE, JUST MY OLDEST IS PHYSICALLY LIMITED. THAT'S OKAY I GUESS, THINGS COULD HAVE BEEN WORSE, I STILL FEEL BLESSED. THANK YOU!!!
CHERI <boybuddy2003@yahoo.com>
CHULA VISTA, CA San Diego - Saturday, May 17, 2003 7:27 PM CDT
Terese, Paul, Liam and Jack...we saw a huge, beautiful rainbow stretching across the sky after the rain finally ended on Mothers Day. The first thing I thought of was Charlie! Rainbows will forever be something magical...thanks Charlie!
Sara Phillips <samatzoll@charter.net>
Farmington, MN USA - Wednesday, May 14, 2003 10:09 AM CDT
My son was born at 30 weeks due to pre eclampcia he weighed 3lb 9ozs. Seeing your photos reminded me of how my son was, and how lucky we are to have him. Our thoughts go to Charlie.
Mrs Shirley Thomas
Port Talbot, UK Wales - Tuesday, May 13, 2003 5:35 PM CDT
My prayers are with you
Kenisha Mccully <mspbi@yahoo.com>
Stone Mountain , GA United States - Friday, May 9, 2003 4:26 PM CDT
Hi. I followed your post on WW to this site. I, too, lost my child to cancer. Marjory was diagnosed with neuroblastoma at age 2 and died shortly after her third birthday in 1998. I still miss her like it was yesterday. I am so sorry for your loss.
Rose <msroser@yahoo.com>
Berkeley, CA USA - Tuesday, May 6, 2003 4:10 PM CDT
I'm sorry for your loss he was a cute litle boy. April,24,2003 I had a litle boy at 29 weeks, he's in the NICU in dayton,ohio. When I read this for the frist time that's all I could think about my son. I have a 2 year old and never had a bit of problems I've had 3 miscarriages before my last son. I know how you feel God Bless You!
cindy murphy <hotielove1@yahoo.com>
chillicothe, ohio - Monday, May 5, 2003 9:46 PM CDT
I am so glad that Paul's surgery went well. I hope for continued healing to go forward. Those little ones just know exactly where to hit. OUCH!!! Great pictures. I still would love to get together. God bless you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Monday, May 5, 2003 9:26 PM CDT
I am so new to all of this and just found this site. I cried my eyes out! On Jan. 2nd I gave birth to twin boys at 25 weeks gestation. We lost our precious Joshua 10 days later. Caleb is a little fighter and despite many set backs (grade 4 IVH, ROP, BPD, reflux, etc...)is finally home. He came home from NICU 3 weeks ago. He is on oxygen, a feeding tube and feeding pump, and an apnea & bradychardia monitor. I'm sure mom's of preemies can relate with me that this is a huge adjustment! (sleep? What sleep?!) It is so encouraging to know I am not alone in this!
Wendi McCallum <wendindave@juno.com>
MI USA - Thursday, May 1, 2003 11:16 AM CDT
I have to admit I have been checking in via your website for a long time .... thinking of you, LIAM ( he is such a star !!), Jack , Paul, and of course Charlie. I was so hoping for the day Charlie, Seth , and Kyle could play on the swings and slides. As we come up on the NICU reunion this weekend I can't help but to think of everyone that we will see . And then I think of Charlie, and how we won't see him , but how he will be there, with all of us, learning with Seth and Kyle about how small he was when he was born and how he had to sleep in an incubator which looks like a cool "see- through tent". Charlie is what the reunion is about : learning, remembering, laughing, crying, but most of all loving. ..... LIAM, I can't wait to see you at the reunion, for in your eyes I know I will see Charlie looking back at me reminding me what the NICU reunion is all about.
Cari Parry <clparry@attbi.com>
Stillwater, MN - Tuesday, April 29, 2003 10:42 PM CDT
You must have a really strong family. My daughter was born at 25 weeks, and it tore our family apart. You son Liam sounds like a very special guy,
Sarah <Destiny5902@hotmail.com>
Boise, ID USA - Tuesday, April 29, 2003 6:23 PM CDT
My daughter is 23 weeks pregnant and her Dr. said her cervix is only 1 centimeter thick. She is on total bed rest to try and continue her pregnancy for as long as possible. Has anyone had a similar story and any suggestions? Thanks, Diane
Diane <domdeemillion@adelphia.net>
Clarence, NY USA - Sunday, April 27, 2003 11:21 PM CDT
Just checking in to see if all went okay with Paul's surgery. Liam you are FAMOUS for you are a star. We love hearing about you, reading what you did at school and all the fun stuff you do. We get to smile and it's all because of you. Thank you....
Deb
Minneapolis, MN - Sunday, April 27, 2003 0:08 AM CDT
I just read Charlie's entire journal for the first time while looking for information about preemies. (I had a daughter, 1# 9oz, and son, 1# 13oz, at 26 weeks, and my little Carley lived five days while her brother, Corey, is still fighting in the NICU at Children's.) Charlie's struggles make me think of Corey, and his eventual loss had me crying for Carley. It's amazing that a short life can leave you with a lifetime of memories, whether it's 3 years or 5 days. It's encouraging to see that these tough times can become more bearable, with the help of God and all the little Charlie's and Carley's watching over us.
Colleen H
Leavenworth, KS - Friday, April 25, 2003 11:49 PM CDT
Hope all went well today!
Chris <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Friday, April 25, 2003 3:57 PM CDT
My daughter was born 3 months prem and weighed 1lb 11 1/2 oz. She had only one obstacle and that was to grow and grow, which she did. She is now 26 and has three beautiful children of her own. None of which were prem.
Jan Stapenell <janstap@optusnet.com.au>
Hobart, Tas Australia - Friday, April 25, 2003 1:02 AM CDT
I am so touched by this site. As a parent of a prem baby I found this site a great support throughout our stay at scbu. We have now been home for 9 weeks and each is as precious as the last. we are thankful to the lord for keeping our baby safe and well. I would like to say a great big thank for helping me through such a hard time
chantelle sandiford <chazza2@excite.com>
london, uk - Wednesday, April 23, 2003 6:34 AM CDT
ANGELS ARE ALL AROUNG US
I JUST LOST MY SET OF TWINS SO I THANK YOU FOR YOUR PAGE

MARGARITA PENA <PUNI68 @AOL.COM>
STOCKTON, CA SAN JOUAQUIN - Tuesday, April 22, 2003 1:15 PM CDT
I hope you had a enjoyable holiday weekend. We stayed in our room and enjoyed being together as a family. I can't wait to met you and the boys. Happy Spring. God bless you all.
Deb
Minneapolis, MN - Monday, April 21, 2003 9:31 PM CDT
I am not sure what to say to you all, as I dont want to pretend to even begin to imagine what you are going through. But I wanted to drop by and extend our condolences and wishes that Charlie is pain free and at peace, looking over you all.
Chris ~ Gooch's Site


- Saturday, April 19, 2003 4:06 PM CDT
Happy Easter to all. I so wish Charlie were here. I hope you all have a safe and restful time up in St. Cloud. We will be thinking of you while we are in North Dakota.

I have been thinking about the match from the Healing Quilt. These kind of incidents seem to frequent and coincidental to be anything more than Diving or "Charlie intervention". They just have to be Charlie's way of saying hello.

Chris Myrah <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Thursday, April 17, 2003 10:08 PM CDT
I just wanted to share with you that I have 3 gardens in my yard at home and they are full of "JOHNNY JUMPUPS" I have "charlies love" all around me and that is the best thing I could ever ask for. I will look at them so differently from know on. I think it is beautiful how children think. God bless you all. We are always thinking of you. Thank you.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Tuesday, April 15, 2003 7:48 PM CDT
"And thank you for Charlie and Grandpa Floyd. I hope they are having a good time in heaven." This line is uttered several times a week by Matthew when saying his bed time prayers. Megan joins in by thinking aloud "Charlie is playing with the kittens" a remembrance of our departed kittens of last year.
We talk about the boys (Liam, Charlie, and Jack) and our children remind us that Charlie is gone. We tell them that gone, does not mean forgotten. We miss our nephew and cousin, but we not let him be forgotten in our home.

Love Big Brother Tim and Family

Tim Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN United States - Tuesday, April 15, 2003 12:22 AM CDT
I am very sorry about what happened. My cousin was born premature also.
whitney Ehler
fairbury, ne us - Tuesday, April 15, 2003 7:09 AM CDT
I found your site by accident today. I was looking at a premature baby site and saw yours and dropped in. I was very moved by Charlies story. God is lucky to have such a beautiful little angel.
I am the grandmother of a beautiful little girl who was born at 23 weeks weighing 1lb 5oz. She came home after 99 days in the NICU. She was breathing on her own for the first 12 days and then went on to a resporator for a few weeks as she was getting tired breathing on her own. She had a few setbacks, her PDU valve opened up twice and it looked like she would have to have surgery but, miricle of miricles the medication worked and the valve closed its self. She did develope ROP and required laser surgery. It went very well and today her eyes are fine.
Before Kylie was born my daughter had been pregnant with twin boys. Noah and Zebediah were born February 14th at 20 weeks and of course did not survive. My daughter calls them her Love Babies. I did not think that I would ever get over the pain of seeing my daughter holding her two dead babies, and my pain of losing the grandsons we were so looking forward to having but, then came our little miricle, watched over by her two big brothers.
Kylie is now 7 months old and weighs just over 10lbs. So far it looks like she has no long term lasting effects of being born so early. She is one of the happiest babies I have ever known. She is always smiling and laughing.
I will be praying for your family and hope you can pray for ours.
with love, Dawn Bowie

Dawn Bowie <andlj@uaa.alaska.edu>
Anchorage, AK USA - Friday, April 11, 2003 1:48 PM CDT
I just wanted to say THANK YOU....You are so special to me. God bless you.
Deb
Mpls., MN - Thursday, April 10, 2003 10:30 PM CDT
I couldn't figure out why I was so "down" yesterday. Then I finally realized what the date was. It doesn't seem possible that Charlie has physically been gone from us for the last six months. He is missed by so many.
Auntie Heather
Jamaica - Thursday, April 10, 2003 5:16 PM CDT
I have a six year old cousin who was born three months early and only weighing in at about 1 pound and 10 ounces. After months on not knowing what would happen, he was able to go home. He had many problems like not being able to breath on his own, not being able to drink more than 1cc of milk, being cross-sighted, born with asthma, and born with a heart murmer. Now I am happy to say that he can breath on his own, can eat almost anything you give him, can say some words, is no longer cross-sighted, no longer has a heart murmer, he still has asthma but can control it better. He can't walk yet, but is getting stronger every day and hopefully the day will come when I get to see him walk!
Azalea Rosas <azalea.rosas@lapryor.net>
La Pryor, Tx United States - Thursday, April 10, 2003 11:34 AM CDT
I have a six year old cousin who was born three months early and only weighing in at about 1 pound and 10 ounces. After months on not knowing what would happen, he was able to go home. He had many problems like not being able to breath on his own, not being able to drink more than 1cc of milk, being cross-sighted, born with asthma, and born with a heart murmer. Now I am happy to say that he can breath on his own, can eat almost anything you give him, can say some words, is no longer cross-sighted, no longer has a heart murmer, he still has asthma but can control it better. He can't walk wait, but is getting stronger every day and hopefully the day will come when I get to see him walk walk!
Azalea Rosas <azalea.rosas@lapryor.net>
La Pryor, Tx United States - Thursday, April 10, 2003 11:33 AM CDT
Your website was very touching to someone who doesn't even know you! I just want to let you know that my prayers are with you always!
Cassie Dexter <cassielee_16@hotmail.com>
Randolph, NY USA - Tuesday, April 8, 2003 5:40 PM CDT
I do a lot of travel research with my job and here is some helpful information regarding your trip. It has links to hotels and events as well.www.canadianrockies.net/banff/

Keeping you and your family in prayers

Shelly Hammett <Shammett2003@yahoo.com>
Louisville, KY USA - Tuesday, April 8, 2003 1:04 PM CDT
i am a young mother of a healty child and also a premature one who is getting healthy i never really thought abou preemies or even knew one until my son was born three months early i went through alot the three months he stayed in the hospital wondering what was going to happen to my child but god pulled him threw and i amso very blessed and grateful and pray for all preemies as i count my bleesing don't worry moms put faith in the almighty god
Sha'nie <MissShanie7@aol.com>
Warren, oh u.s.a - Sunday, April 6, 2003 4:25 AM CDT
Liam,
I don't know what's at the end of the universe, but I know i would like to get ice cream after a haircut - or before a haircut, or maybe both. Good work on your spelling. If your 'frig door gets too full, there's always Granpas and Grandma's friges.
God bless you
Jay and Lyn Hedlund,. friends of your parents and grandparents.

Jay and Lyn Hedlund
- Saturday, April 5, 2003 5:39 PM CST
Just stopping in to say hello...It is so wonderful to read your updates. You are a very strong person. Thank you for sharing your life with all of us. I hope I can be as strong as you.
Deb
Minneapolis, - Thursday, April 3, 2003 0:30 AM CST
i lost a baby cousin at 10 days old it was one of the harest things i ever went through. there are no words to explain thepain when losing a baby in the family. my prayers are with you and your family
Tiffany Kassander <Tiggerbabe2125@aol.com>
warren, ohio united states of america - Tuesday, April 1, 2003 7:45 PM CST
i can not imagine the pain you must have felt. my thoughts are with you and his brother. may he looking down on you from above like a little angel.
maria grifiths <maria.griffiths1@ntlworld.com>
brighton, england - Tuesday, April 1, 2003 2:01 PM CST
I just want to say I am sorry for the loss of your precious son. My son was born at 26 weeks and was NICU for 6 weeks. When he was 65 days old (2 months 4 days) he died from SIDS. I wish I had known that preemies were at a higher risk for SIDS but I did not and now he's gone. I miss my son each day and I'm sure you know that feeling. Thank you for sharing Charlie with everyone.
Roxane (Alexander's Mommy) <roxgill@juno.com>
Corpus Christi, TX USA - Monday, March 31, 2003 0:08 AM CST
I came across you site as a cross reference from a friend's child's site as she battles cancer. I am rasing a 24 weeker who is 10 years old now and I had never in all my research or reading came across the premature infant/cancer relationship. We were blessed with a healthy outcome but I thank you for urging the father reseach into this situation. What a blessing you are to new infants that might be tested and treated in a more timely fashion. God bless you and your beautiful family.
Sandra <ahonbarger@carolina.rr.com >
NC - Sunday, March 30, 2003 6:54 PM CST
im new to this preemie thing. i just recently gave birth the twins i had them at 26 weeks and i know that they have only servived only because of the grace of god. i really scared one seems to be doing really well and one she going to needs some help. but i have found strength just from reading about your son. he was hansome from the picture i saw i. i really do appreciate the opportunity to say that i am sorry but i know that charlie is watching over his family. i am really having a hard time in my life with my preemie babys and i know you all must have went through a lot alsol. i am going to pray for your family and i hope and pray that u all do the same for me . love the bradleys
sheryl bradley <eddladyebony@aol.com>
beaumont, ms usa - Saturday, March 29, 2003 10:04 AM CST
My thoughts are always with you. I will continue to check in.
Deb
Minneapolis, - Thursday, March 27, 2003 11:31 PM CST
Therese and Family,

I think of you all daily and have such respect for your courage and the way you continue to handle yourself after everything you have all been through. Your experience has made me put alot of things in perspective. I think your doing a fantastic job and I bet Charlie is proudly looking down on you all. You should be proud to know that Charlie's story and life have touched so many even all over the world and as far as Australia and continue to do so. Warm Regards
Tammy - Mum to Harrison (Australia) Preemie L

Tammy Hunt - Preemie L <tammy.hunt@ericeqld.org.au>
Bunya, QLD Australia - Monday, March 24, 2003 11:05 PM CST
I'M VERY SORRY FOR YOUR LOSS, BUT ALWAYS REMEMBER THE GOOD TIMES THATS WHAT I DO

NICOLE WAGNER
WAHIAWA, HI USA - Thursday, March 20, 2003 9:00 PM CST
Hoping all is going well. You are in my thoughts and prayers daily. God bless everyone.
Deb
Minneapolis, - Wednesday, March 19, 2003 11:54 PM CST
I miss Charlie so much. I love him and remember him. He is nice to me. I liked it when he came over and we had a picnic outside. He shares toys with me. He loves his oranges puppy. He loves his mom and dad and Liam and Jack. I hope he is not sick anymore.
Cousin Max, age 4
Cold Spring, MN - Wednesday, March 19, 2003 8:25 PM CST
Glad to hear that everyone is doing well (AND that you took a much-needed break to relax in the Florida sun). Thoughts of Charlie and prayers for all of you continue. Wishing you the very best.


Mother in Illinois
Chicago, IL USA - Wednesday, March 19, 2003 5:09 PM CST
This is the first time I have visted this site and want you to know I will be back regualrly. My daughter was born 13-15 weeks premature and weighed 2pounds. I was scared to death and didnt really know what to exspect, I wish I had been online then to have found someone to talk to, I am happy to say that my little girl will be 6 in may and doing great. God bless you and your family.
Beckie David Lynch <preshsdad@aol.com>
columbus, ohio - Wednesday, March 19, 2003 11:51 AM CST
Just stopping by to wish you all a HAPPY ST.PATRICKS DAY. Hoping life as settled down alittle bit. God bless you all.
Deb
Minneapolish, MN - Monday, March 17, 2003 10:47 PM CST
Whew, what a relief that all looks good for Jack! I'm so glad to hear that Liam likes his new school, I'm sure his bright mind is enjoying the challenge. I heard you were in the hospital last week and missed bumping into you. One of my favorite memories of Charlie was running into you both in front of the gift shop after one of Charlie's treatments. He had his blue mask on and had just picked out his treat but was so excited to tell me about how he tried spaghetti WITH the sauce. I'm not exactly sure who was more excited, him or me?!?!? I'm glad to hear the Kiehne Klan is hanging in there with more strength and courage than any family I've ever met! Hang in there, and I'm still waiting on that book!
Tricia <tricia.armstrong@childrenshc.org>
St Paul, MN 55105 - Monday, March 10, 2003 10:00 PM CST
I'm glad to hear the ultrasound looked good. You are in my thoughts and prayers daily. God bless you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Monday, March 10, 2003 0:46 AM CST
I'm glad to see the update and will continue to pray for your family. Blessings to you.
Khalita www.caringbridge.com/nc/khalita Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC - Sunday, March 9, 2003 7:52 PM CST
Hi and God bless you I am a 19 year old girl in Orlando Florida, Also the mother of a premature son named Chance. I truly understand how it feels. My son was born at 29 weeks and weighed two pds. I went through the whole three monthys basically by my self so be thankful you gus have alot of people supporting you and Keep me and my son in your prayers
Frantavius Conquest <Chantze0405@yahoo.com>
Sanford, Fl America - Wednesday, March 5, 2003 11:44 PM CST
hi, i was a premiture baby myself, 12weeks early and weighing 2lb 3oz, so i now the ups and downs. Your web site is really good and lets mothers now about what its like to be a mother and if they are considering then its just more good news.
sam <sam_purple17@hotmail.com>
united kingdom - Tuesday, March 4, 2003 7:32 AM CST
Hello. I'm very Sorry for your loss. Your in my prayers.
however,
Charlie's your lil' angel watching over you. God bless!!!

Thereza <treza925@aol.com>
Pittsburg, ca usa - Monday, March 3, 2003 8:57 PM CST
This is the first chance I've had to check in on the page in quite some time. Terese, I want you to know what an inspiration of faith, love, and strength you are to me...not only as a mother, but as a woman as well. It is amazing how you stay positive and upbeat in the face of whatever is in your path. To Liam: Way to go on the new school! We're rooting for you in South Carolina! To Jack: I hope you get to feeling better soon. Surgery can be tough, especially on such a little guy, but you've got the best Guardian Angel there is!
Rachel Oliver <rachel@blackhat.org>
Aiken, SC USA - Monday, March 3, 2003 7:42 PM CST
Hi.To start off with I would like to say how sorry I am to hear about your loss. I come across your website as I was researching about prem babies because my neice was born 6 weeks early at 3lb.At one point in the pregnancy it was said she would not survive at all.At this time I lost all faith in God.Then because of problems with growth it was said she was ok but would never be 'normal'.After deciding she wasn't growing in the womb a cesaerean was performed.Out she came and there was no signs of anything mentioned during pregnancy. She stayed in Special Care Baby Unit for 3 weeks, being fed through a tube and now she is home.My beautiful neice is now 8 weeks old, and although there is still problems she is alive and well and after being told she was never going to take a breath and now she screams at the top of her tiny lungs I finally believe in God again.
I know my story could never bring back Charlie but hopefully it will encourage other parents of premature babies to stay positive.

Kati <kati_bong@yahoo.co.uk>
Co.Durham, England - Saturday, March 1, 2003 5:32 PM CST
Hope Jack is doing well and fully recovered. You are in my thoughts and prayers!
Kathy Haws
Thousand Oaks, CA. - Friday, February 28, 2003 6:19 PM CST
Thank you for sharing Charlie's Srory. I read all of your past journal enteries to get to know this special little boy. Lots of love and prayers are sent your way. From a mom of a 25weeker
shawnee a.k.a cnapcttlc <shawnee@ramseyer.org>
detroit, mi usa - Tuesday, February 25, 2003 4:14 PM CST
There are over 28,000 of us out here who care. Charlie is so sorely missed. Charlie's page provides a way to feel connected, to hear how you all are doing and provides so much inspiration to those of us who miss him. Charlie is never far from thought, and neither are the rest of the Kiehne or Lewis families.
Chris
Apple Valley, MN - Monday, February 24, 2003 10:34 PM CST
who cares!!!!
dana <hieidragon7@cox.net>
mesa, az united states - Monday, February 24, 2003 9:33 PM CST
So glad things went ok with Jack and hope he isn't too miserable. Know it must have been rather terrifying. Liam is a real trooper too! You are always in our thoughts and prayers.
Aunt Sandi & Uncle Doug

sandi suddaby <sandi@sandisuddaby.com>
Sarasota, FL usa - Sunday, February 23, 2003 8:04 PM CST
Just checking in and very happy that Liam is excited about the new school.
Deb
minneapolis, - Wednesday, February 19, 2003 11:46 PM CST
Hello Terese, Paul, Liam & Jack,
I finally caught up on most of your back journal entries. I am leaving for Eagan this Wed. morning for the MN Chamber Conference. I will see you sometime late afternoon Wed. and plan on staying 2 nights as we had discussed. I am excited to visit with you all and catch up in person. See you soon! I'll try not to get pickpocketed in Eagan. I have been thinking of Alicia a lot!!!

Julie Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN USA - Tuesday, February 18, 2003 5:01 PM CST
Good luck tomorrow Liam at your new school. I hope everything goes well. I'm still checking in all the time. I think about you all a lot. (((Hugs)))
Athena
TN USA - Tuesday, February 18, 2003 1:15 AM CST
Just sending a wish for a HAPPY VALENTINES DAY FOR YOU ALL. I hope the day is filled with love, great thoughts and lots of love.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, - Friday, February 14, 2003 11:53 PM CST
You guys are just amazing - i stumbled onto Charlie's storey quite by accident but was very quickly hooked - i come by all the time to check out how you guys are going! I am not ashamed to admit that my tears feel freely when i read that Charlie passed away - and i was grinning from ear to ear when Jack was born! Your strength is an inspiration...
Leeanne <lr@alphalink.com.au>
Melbourne , Victoria Australia - Thursday, February 13, 2003 8:04 PM CST
Hi again, my name is debbie and I have adopted CHARLIE what a beautiful name. I'm glad that you had a nice vacation with Liam. I hope he is feeling better. I will have been checking in everyday and will continue to do so. My prayers are with you always. By the way, you are a wonderful loving caring mom. Stay strong and know there are lots of people here for you.
Deb <www.caringbridge.com/mn/ajtoivola>
- Tueday, February 11, 2003 11:54 PM CST
I am writing this message as I have just found your site for the first time. I think you are all amazing, and I hope that Charlie sees you with your other two sons, and smiles down on you from heaven. My niece came over the other day and saw a rainbow. She told me that a rainbow appears when an angel smiles, so I guess Charlie is making rainbows of his own now. Our daughter Bethany was born at 25 weeks, weighing just 1lb 2oz (530g), and we were told her chance of survival was 50/50. That was on 7th June 2002, and after a close brush with ROP, almost needing surgery for potential NEC, and spending not only the first 6 weeks of her life on a ventilator, but another week later on because she inhaled some milk instead of swallowing it!, she finally came home on November 25th 2002. She still needs oxygen, has some minor bowel problems she should grow out of, and has been classified as deaf, but she is our little miracle. She is really well developed physically, sits up, and even tries to stand! Your site gives hope and encouragement along that long road home, and people like Ann Chovie should not interfere in what they cannot possibly understand. I admire your courage, and I hope God continues to support you. Also, here is a reading that my Grandad had at his funeral - I hope it gives you comfort:
Death is nothing at all. I have only stepped into the next room. I am I, and you are you. Whatever we were to each other, that we still are. Call me by my old familiar name, speak to me in the easy way which you always used. Put no difference in your tone, wear no forced air of solemnity or sorrow. Laugh as we always laughed, at the little jokes we enjoyed together. Pray, smile, think of me, pray for me. Let my name be ever the household word that it always was. Let it be spoken without affect, without the trace of a shadow on it. Life means all that it ever meant;it is the same as it ever was;there is unbroken continuity. What is death but a negligible accident? Why should I be out of mind because I am out of sight? I am waiting for you, for an interval, somewhere very near, just around the corner. All is well.
Extract from a letter by Canon Henry Scott Holland in 1918.
My love to you all,
Nikki

Nikki Hudson <markandnikkih@aol.com>
Suffolk, England - Monday, February 10, 2003 10:32 AM CST
HELLO EVERYONE MY NAMES SAM I HAVE A 3 MONTH OLD LITTLE BOY WHO WAS 11 WEEKS EARLY AND WEIGHED ONLY 2LB 5OZ HE NOW WEIGHS 7LB 3OZ ITS NICE TO HEAR EVERYONE ELSES STORYS NO MATTER HOW SAD
SAM SHAW
WEST MIDLANDS, UK - Saturday, February 8, 2003 8:47 AM CST
Not to worry, Ann Chovie! (Hmm...something seems a little fishy there...) Our firstborn, Liam, is still alive and kicking, and ready for more "neglagince" after his much-deserved escape to Florida. One of the first comforting thoughts I had after Charlie passed away is how grateful I am that he'll never endure the miseries of being 13! Please visit us again after you've grown up a bit -- your concern for Charlie and the hellish life style he has escaped is touching, and I'm sure Charlie is having a good laugh from above.
Terese
- Friday, February 7, 2003 11:12 AM CST
i think u are a horrible mother!......going out and having fun in florida rite after ur first born son dies!!!!....
im only 13 but at least i know i would be a
way better mother then u! im glad the
kid died he got to escape ur
neglagince and hellish life style!

RIP Charlie......dont worry i love you

ann chovie
- Friday, February 7, 2003 10:22 AM CST
Hi, I'm a NICU nurse from Satellite Beach, the little beach town just south of Cocoa Beach. I came across Charlie's page while doing research on how to best meet the emotional and comfort needs of premature babies and their families......Thank you for your kind mention of the Columbia accident. My husband works at KSC, needless to say the folks in this area are blanketed in sorrow at this time.
Karen Caruso <karenc@cfl.rr.com>
Satellite Beach, FL - Wednesday, February 5, 2003 8:56 AM CST
Just checking in on you and glad you had a nice trip. Shell hunting is alot of fun. I hope you get a good night sleep.
Deb
- Tueday, February 4, 2003 1:03 AM CST
your sorry wasa a sad story but it is good to tell
heather <heatherann1990@aol.c09om>
blank, bl blank - Monday, February 3, 2003 4:42 PM CST
I'M ONE PARENT OF PREMATURE BABY
AT DUKE HOSPITAL .
I'M BUSY RIGHT NOW . I HAVE NO COMMENT FOR NOW.
I WILL BE GLAD TO RECEIVEID AS SOON AS POSSIBLE YOUR GUESTBOOK.
THANK YOU.

EUGENE OSCAR MATONDO <OSCKARD@AOL.COM>
DURHAM , NC UNITED STATES - Monday, February 3, 2003 4:42 PM CST
i think premature babies are cool when i look at the picture of charlie it maks me want to brak down and cry so i want the whole world to know that i care about premature babies.
raven hill
enterprise, al us - Sunday, February 2, 2003 4:02 PM CST
Dear Paul and Jack--Hey dudes, you omitted to say what COLOR those interior cabinets are being painted! Your worldwide readership wants to know. (Or at least I do, being that I'm a color affectionado. Are you two going to venture forth after T an L return? Perhaps you should choose California for a trip. :)
I think of you every day--wondering how profoundly beautiful the memories of Charlie are becoming and how you are cultivating that beauty. Remember those pictures of Charlie we had taken at the wedding? I'm trying to get that same photographer to come to my school, to take some "Day In the Life" portraits of our teachers working with students. (That's assuming our grant money extends to meet the bill). Photographs have time stopping power, they do.
I'm quite amazed at the extent and scope of this website. Someone needs to do some web design, with Charlie's logo:
a globe with an encircling rainbow. Love,Margot (and Roo)

Margot Mason-Jones <mmisfit@webTV.net>
PHX, AZ USA - Wednesday, January 29, 2003 at 06:52 PM (CST)
i really liked your website. i had my son at 24 weeks and he is doing fine considering he is blind and eats through a g-tube still. it is still a struggle to keep him healthy and its a lot of time and stress to care for a premie- if anyone has sugestions please fill free to email me
kelly spiller <precious_angel2325@yahoo.com>
bartlesille, ok usa - Wednesday, January 29, 2003 at 09:47 AM (CST)
hello, I'm Hilary, i've never been here before but would love to chat with everyone. I had twins(2 boys) 8 mnths ago, they were born at 32 weeks on the day, they are fine, but i'm not sure how i go about talking to people, if someone could help me out i would be greatful.
Hilary McDonald <premtwinmum@yahoo.com>
Barrie, Ontario, Canada - Monday, January 27, 2003 at 06:56 PM (CST)
This is the first time I have come across your website and just had to respond having read some of the coments in your guest book.

I have 2 sons both born prematurely as a result of pre-eclampsia. My eldest is coming on 3 1/2 years old and was born at 27 weeks gestation weighing 2lb. Before he came home at 8 weeks old he had suffered a collapsed lung, countless blood transfusions, various infections - contracted whilst in hospital - and endured horrific eye exams (attributed to the ventilation he received in SCBU (your NICU?) He's still small for his age but is a real bundle of energy - a tribute to the resilience children exhibit despite the difficulties they endure.

My youngest is just 10 months (born at 32 weeks and 3lb 12oz) and has suffered repeated bouts of bronchiolitis since his first attack at 8 weeks old, when we came close to losing him. Consequently, we have to administer a variety of inhalers each day - which he now objects to very strongly! - and we are constantly on our guard against the dreaded cold bug as each infection results in a quite dramatic weight-loss. The little guy is now just on 16lb and seems to be playing "catch-up" and wants feeding nearly all the time!

No-one warned us just how demanding premature babies can be and if I'm honest I've found life difficult to cope with sometimes. Nevertheless, my husband and I consider ourselves extremely lucky and truly blessed that our boys are with us today.

My heart goes out to all other parents who have experienced the trauma associated with premature birth, especially those whose children did not come home and those that are suffering ongoing health problems. Our thoughts and prayers are with you all.

Mandy Kern <a.kern@ntlworld.com>
Hampshire, UK - Monday, January 27, 2003 at 06:06 PM (CST)
your strenght helps me draw on my own. thank you for sharing with all of us
mandy <sealme32@att.net>
eckert, co united states - Sunday, January 26, 2003 at 04:11 PM (CST)
You don't know me but I just read your story and I am so touched by the beauty in which you write. I feel as though I know your family and charlie. My son is 3 years old and has hepatoblastoma also. Addison was diagnosed in April of 2002. You are such a inspiration and I just wanted to thank you. My prayers are with you and your family everyday.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Wednesday, January 22, 2003 at 01:17 AM (CST)
Dear Terese and family,
I came across your story by accident, or by fate. I have a son who turned 1 on the 12th October 2002 - his name - Charlie. I am a Special Education teacher with children with severe disabilty, some I teach have been born early but have come across enourmous hurdles. You have told the story of your sons courageous struggle beautifully and I guess it touched home to me in a great way because of my sons name. I have had an easy time with my son - a great contrast to your family and I guess sometimes I take it for granted. Certainly from now on each time I look at my son or call his name I will think of your son and thank God that for each day I am able to wake up and see, touch, feel and smell my Charlie. I thank you for sharing your story with the world.

renae <renaeandjim@hotmail.com>
Qld Australia - Tuesday, January 21, 2003 at 04:31 PM (CST)
Please forgive me if this is inappropriate for you. My friend Amie & I are trying to raise awareness for more kids' sites and get more support and prayers going. I am a CaringBridge mom, if you don’t know me, my son’s site is at: http://www.caringbridge.org/page/gooch

We are asking people to “adopt” one kid (or more!) and promise to visit their sites weekly to add messages and let them know people care. Your site has been either recommended by someone who knows you, or seen as a link on another child’s page. We are asking your permission to include your child. We include the sites of beautiful children who have passed on, because we feel those families need the most support. Many of the “adopters” are in the same unbearable situation of having lost a child too. If you want to read all about this, please go to my son’s page – the one listed above. We are NOT a part of CaringBridge at all, it just so happens the bulk of the kids sites are ON CaringBridge. Many of us are in the same situation of having our lives turned upside down. Just let us know if you want your child REMOVED, otherwise you don’t need to do anything else but enjoy some new messages here and there. Soon you will be getting guestbook messages from someone who has "adopted" your site (if you don’t want to participate just let us know and we will understand). We know the encouragement from others is important, and even if you don’t feel you need it, someone else may be visiting your site and drawing strength from you. We will be praying for you.



Chris ~ Gooch's Site
Adopt a Kid's site Here

- Monday, January 20, 2003 at 10:47 PM (CST)
Hello,

I have just read Charlie's story and I was so saddened and yet so grateful for what I have. I am the very proud father of a 27 week old preemie named Vaughan (born 11/10/01, 932 grams) who had two brain hemorrhages (IVH grade 3 and a serious brain matter bleed), and people told us we were strong? I can't begin to tell you how much your story has touched me and how much I respect you for your strength and courage. I think that maybe Charlie was rubbing off some of his strength and courage on you. God bless you for the dedication you had to write in the journal so regularly so that all of us could share his story. Having a preemie, I always thought that I had such a "true" appreciation of the gift of a child. After reading your story, I know that you are one of the few people that will ever have that "true" gift. GOD BLESS YOUR FAMILY, IT'S TRULY SPECIAL!

Joe Murray <Joemurray2@yahoo.com>
Lombard, IL USA - Saturday, January 18, 2003 at 12:54 AM (CST)
To all who continue to visit Charlie's website we give thanks to God for your prayers and uplifting words. Our hearts still ache and we miss Charlie, but know he is in heaven which is such a comfort. We rejoice with all your children who were premies and continue to grow. We grieve for those of you who have lost a child--we pray you are comforted by the only One who can give true comfort. We continue to be amazed as this website grows and touches people all over the world. God's plan for Charlie's life continues.
Charlie's Opa and Oma (Grandpa and Grandma)
Austin, Minnesota, USA - Thursday, January 16, 2003 at 09:40 PM (CST)
I have just read Charlie's story. Where's the tissue!! I am an aunt to a beautiful 18 month-old born 27-28 weeks gestation. I will never forget the visit's to the NICU with my sister, and I know that while scary, it's the spirit of the baby that keeps them going. She was breathing on her own when she came out, and through the surgeries, just kept on going. Charlie's spirit and of course his little socks, will live on in all of you, forever. Just watch and see, I bet Jack has a little of Charlie in him too. God Bless you all.
Maria <tiario1@yahoo.com>
Sublimity, OR USA - Thursday, January 16, 2003 at 02:18 PM (CST)
Hello to all. I was browsing through the premature babies websites and I came across Charlies story. I am sorry to hear about Charlie. My thoughts and prayers are with his family and friends. I am also a mother of a beautiful baby boy named Gabriel Anthony. My son is truly a gift from God. My son was born at 23 weeks gestation. Weighing (635 grams) approximately 1lb 6oz. Not given hours to live, my son now is 10 1/2 months old. It has been a difficult journey, but I have thanked God for each day he has blessed me with my son. To all parents and families of premies, God Bless You All!
Kristina Contreras <kcontreras@cuhsd.net>
El Centro, CA USA - Wednesday, January 15, 2003 at 12:17 PM (CST)
You have a punkin head baby! I have one also. He is adorable. :-)

kathy
silver spring, md 20906 - Tuesday, January 14, 2003 at 11:23 AM (CST)
I have a 24 week premature son that is now 8 weeks and 3 lbs!!!
Allison Bell <Alibabe922@yahoo.com>
Greenwich, NY USA - Thursday, January 09, 2003 at 10:53 AM (CST)
I cannot begin to tell you how sorry I was to read about Charlie. I too used your site at my moment of need when Olivia was born at 24 weeks weighing just 1lb 5 oz. For a good while I would use your story to give me hope and I always tended to visit when I needed inspiration. Olivia started nursery today (pre school in America) and I went to visit your site as a reminder of our journey.
My heart goes out to you and your family but please know this the life of your son helped countless others. He truly was a blessing from God.

Jacqui Gedman <jacquigedman@supanet.com>
Huddersfield, England - Wednesday, January 08, 2003 at 10:27 AM (CST)
God bless your family!! I used to continuously come to this website just after my precious son was born 8 weeks premature. Then life got busy and this is the first time that I have come back to it. I am so very sorry to hear about your precious son Charlie. The beauty, preciousness and fragility of life was really brought to my attention when my son was born. I have realized not to take every day for granted. I will be praying for your family and for Liam. I pray that he is adjusting ok. My heart goes out to you all.
Julie Roth <hawaii777@hotmail.com>
Aurora, CO USA - Tuesday, January 07, 2003 at 11:28 PM (CST)
My, how I wish my greatest problem was the store being out of cardamom! Shortly before Christmas, I overheard a coworker mention that a tragedy had occurred in her friend's life. My first thought was "Oh my goodness, what in the world has happened?" Well, it turns out that the "tragedy" was that her Christmas tree had fallen over and some of the ornaments had broken. I didn't know whether to laugh or cry. People just don't get it do they?!?! I don't suppose I did either until I found myself in the world of cancer. It's amazing how unimportant almost everything in my life has now become. I came across Charlie's website shortly before he left for heaven, and I have continued to keep your family on my prayer list. He is just so precious. I miss the picture of him with his tomato plants that he prayed for every night. I thought that was so sweet. Little Charlie and other little ones like him really bring to life Jesus' words in Matthew 19:14 where he said not to forbid the little children to come to him ". . . for of such is the kingdom of heaven." This lets me know that heaven is indeed a precious place.
Kim Rutherford
Knoxville, TN USA - Tuesday, January 07, 2003 at 03:07 PM (CST)
I come to read Charlie's site periodically, and I am always astounded by your wondrous faith in God.

I first learned of you about one year ago, when Robyn asked us (from babycenter) to pray for you each day. Every day I prayed for you and the health of your baby, not knowing or dreaming what the year had in store for you.

Your spirit inspires me every day, and I have to reflect on all that I have and all that God has given me.

May God Bless you and your family with much peace, health and happiness in the year to come. Happy New Year and May God Bless you!

Marceen <marceen@gasperoni.com>
Mi USA - Tuesday, January 07, 2003 at 02:01 PM (CST)
Was just checking Charlie's site and wanted to let you know that I was thinking of you all. It was wonderful to hear how your family celebrated Charlie this Christmas. Can't wait to see the photo of the festive feet! Thanks for continuing to share your stories.
Take Care, Julia

Julia Copeland <julia.copeland@childrenshc.org>
- Tuesday, January 07, 2003 at 09:00 AM (CST)
Our prayers go out to your entire family. May God give you the strength you need to get through. This web site is highly strengthen for all of us to keep up on the day to day changes and prayer requests Will still keep you in our prayers
Mr. Md. Fazlullah Baig, Mrs. Sabir Begum & Our Premie Baby Azeeza Sulthana <fazalbaig2727@yahoo.com>
VIJAYAWADA-520 010, ANDHRA PRADESH, INDIA - Sunday, January 05, 2003 at 01:44 AM (CST)
We r very glad 2 visit ur "Parents of Premature Babies" site...we'r appreciating for ur kind support for Parents of Premature Babies..as we r also parents of a premature baby of 41/2 years now...By birth (11.06.1998) our baby is 900gms weight n she's in Incubator for 77 days...now her age is 4yrs 29 weeks ...now she's able 2 sit, listen music, play...but unable 2 walk n talk...by the grace of God she's very active ....Please bless our child for her good health...
Mr. Md. Fazlullah Baig & Mrs. Sabir Begum <im_a_premature_baby@yahoo.com>
VIJAYAWADA, ANDHRA PRADESH, INDIA - Saturday, January 04, 2003 at 01:32 PM (CST)
As you enter this new year, we hope for more comfort and peace for you, and growth with your boys, and a more comfortable acceptance of Charlie's absence, while remembering his wonderful presence. With our fondest thoughts, wishes and prayers,
Aunt Sandi, Uncle Doug

Sandi & Doug Suddaby <sandi@sandisuddaby.com>
Sarasota, FL usa - Friday, January 03, 2003 at 07:29 PM (CST)
My daughter's due date was March 1, 2002 and she was born December 23, 2001. She weighed at birth 2lbs. & 15 ounces. She now weighs 24lbs. No problems at birth and none now. Healthy as can be. She just wanted to come out and play with her 5 cousins.
Leticia Sanchez <lsanchezcsi@aol.com>
San Francisco, CA USA - Friday, January 03, 2003 at 06:17 PM (CST)
Although it is true that you will not see note of Charlie's passing on the world retrospectives of 2002, I hope that you will believe that Charlie's passing has NOT escaped the world's notice. Thanks to this website and your willingness to share the journey of Charlie and your family, many people throughout the world have been touched by Charlie's life and death and by your whole family's struggle. We have made note. We will remember.

Mother in Illinois
Chicago, IL USA - Friday, January 03, 2003 at 09:58 AM (CST)
Letter from Heaven

To my dearest family, some things I'd like to say.
But first of all, to let you know, that I arrived okay.
I'm writing this from heaven. Here I dwell with God above.
Here, there's no more tears of sadness; Here is just eternal love.

Please do not be unhappy just because I'm out of sight.
Remember that I am with you every morning, noon and night.
That day I had to leave you when my life on earth was through.
God picked me up and hugged me and He said, "I welcome you.

It's good to have you back again, you were missed while you were gone.
As for your dearest family, They'll be here later on.
I need you here badly, you're part of my plan.
There's so much that we have to do, to help our mortal man."

God gave me a list of things, that he wished for me to do.
And foremost on the list, was to watch and care for you.
And when you lie in bed at night the day's chores put to flight.
God and I are closest to you....in the middle of the night.

When you think of my life on earth, and all those loving years.
Because you are only human, they are bound to bring you tears.
But do not be afraid to cry: it does relieve the pain.
Remember there would be no flowers, unless there was some rain.

I wish that I could tell you all that God has planned.
If I were to tell you, you wouldn't understand.
But one thing is for certain, though my life on earth is o'er.
I'm closer to you now, than I ever was before.

There are many rocky roads ahead of you and many hills to climb;
But together we can do it by taking one day at a time.
It was always my philosophy and I'd like it for you too;
That as you give unto the world, the world will give to you.

If you can help somebody who's in sorrow and pain;
Then you can say to God at night......"My day was not in vain."
And now I am contented....that my life was worthwhile.
Knowing as I passed along the way I made somebody smile.

So if you meet somebody who is sad and feeling low;
Just lend a hand to pick him up, as on your way you go.
When you're walking down the street and you've got me on your mind;
I'm walking in your footsteps only half a step behind.

And when it's time for you to go....from that body to be free.
Remember you're not going.....you're coming here to me.

Written by: Ruth Ann Mahaffey




Cathy
- Thursday, January 02, 2003 at 10:29 AM (CST)
Terese, Paul, Liam and Jack...
I hope you all had a peaceful Christmas and New Year. You are all in my thoughts and prayers and I cannot imagine how difficult the first Christmas was without Charlie. I wish you peace and happiness in the New Year and please don't hesitate to call me if you need ANYTHING!
God Bless,
love,
Tricia

Tricia Armstrong <tricia.armstrong@childrenshc.org>
St Paul, MN USA - Wednesday, January 01, 2003 at 08:34 PM (CST)
I first found your story when my 4th child (child 2 passed at 20 weeks gestation) was born in April 2002 at 24.5 weeks weighing 1 and a half pounds. I was so inspired by your family and the tremendous support that you were receiving. I was quickly caught up into my own wirlwind of a life with 2 other children, my own bussines and the huge emotional task of having and infant in the NICU, that I stopped visiting your site and all others as well. Today as my children sleep, and my DH is out in the sunshine I thought I'd wander back through some of the sites I had bookmarked. I was shocked when I read the news of Charlie's passing. He was what I hoped for Nicholas, my guidline that made me sure I could overcome any obstacle. I know that Charlie's death is not an indication of what preemies as a whole will go through but you as a family are an inspiration for sharing your lives with others a world away. I am so grateful that today, January 1, 2003 you touched my life again and made me relize that no matter what I may be going through personally there are others who have gone through so much more. I honor you, I will keep you and your family in my thoughts and prayers. Charlie will forever be an Angel to watch over others that have endured what he endured. Happy New year to you all, Thank you for your inspiration! Krysti Dean Mother to Madeline, age 5 (Heart Surgery at 8 weeks) McKinley (Born and Died June 23 1998 20weeks) Mason age 2.5(Big FAT Healthy Boy!) and Nicholas age 9mos (corrected 5mos, 24.5 weeks, PDA, BPD, IVH, NEC, and the list goes on...)
Krysti Dean <dean0597@aol.com>
Sacramento, CA USA - Wednesday, January 01, 2003 at 03:56 PM (CST)
Our son Nathan was born here in the UK in the early ours of the 6th Oct 2002. He had difficulty breathing but thankfully he has now got over that. This has prompted us to raise awareness and money for our local support group for babies in intensive care (like youre Premie?). A story like yours gives us even more resolve to carry on this task that we have set ourselves. Your sad tale has filled our eyes with tears only parents can undestand, but has filled our hearts with the strength that every one can understand. Thank you for sharing this story with us and may God bless you all.
David Fisher-Holt <frisky@itagin.demon.co.uk>
- Wednesday, January 01, 2003 at 01:07 PM (CST)
So, sorry about the loss....and know your little angel in heaven, is now at peace.....Luvya lotsa..."INDI", indilovesbikki@yahoo.ca I lost a bunch before I had my 5 preemies....
Inderjit K Sidhu <indilovesbikki@yahoo.ca>
Surrey, BC Canada - Tuesday, December 31, 2002 at 01:06 PM (CST)
My First Christmas in Heaven


See the countless Christmas trees around the world below,
with tiny lights, like Heaven's stars, reflecting on the snow.
The sight is so spectacular, please wipe away the tear,
For I am spending Christmas with Jesus Christ this year.

I hear the many Christmas songs that people hold so dear,
But the sounds of music can't compare with the Christmas choir up here.
I have no words to tell you, the joy their voices bring,
For it is beyond description to hear the angels sing.

I know how much you miss me. I see the pain inside your heart,
but I am not far away. We really are not apart.
So be happy for me dear ones. You know I told you dear,
And be glad I'm spending Christmas with Jesus Christ this year.

I send you each a special gift from my heavenly home above,
I send you each a memory of my undying love.
After all "love" is the gift more precious than pure gold,
It was always most important in the stories Jesus told.

Please love and keep each other, as my Father said to do,
For I can't count the blessings or love he has for you.
So, have a Merry Christmas and wipe away that tear,
Remember, I am spending Christmas with Jesus Christ this year.

A friend
- Saturday, December 28, 2002 at 03:17 PM (CST)
FIRST THINGS FIRST: GET THE BABY PROPERLY BAPTIZED. PROMISE TO RAISE THE CHILD IN THE ONLY ONE TRUE CHURCH, THE HOLY CATHOLIC CHURCH. USE ORDINARY WATER, AS YOU POUR THE WATER, OVER THE FOREHEAD, SAY AT THE SAME TIME: "I BAPTIZE YOU IN THE NAME OF THE FATHER, AND OF THE SON, AND OF THE HOLY GHOST." POUR AT THE SAME TIME AS YOU SAY THE WORDS. ONLY ONE CAN BAPTIZE, THAT IS SAY THE WORDS, WHILE POURING THE WATER. HAVE THE INTENTION TO RAISE THE CHILD IN THE ONE AND ONLY TRUE CHURCH, AND TO TAKE AWAY ORIGIONAL SIN. JMJ JMJ JMJ JMJ JMJ
PHILIP OF JMJ <WWW.PHILLIPFMCCABE@AOL.COM>
DALLAS, TX USA - Wednesday, December 25, 2002 at 10:49 PM (CST)
My son is affected by hepatoblastoma, when he was 2 months old (10/03/2001) had surgery with the complete removal of liver right side. After surgery he remained
in the ICU for eleven days. Fortunately someone or something helped him, and was able to continue the treatment against cancer.
I wish you peace for this Christmas and next year; may God bless you and your child Charlie. I hope Charlie in heaven could help all other children that are fighting against cancer.

Simone Gragnoli <s.gragnoli@inwind.it>
Firenze, ITALY - Tuesday, December 24, 2002 at 06:05 PM (CST)
I have a son who was born at 25weeks.It's athe scary journey and the best journey of my life..he's home now...Adrian Paul Galvan wieghs 8lbs 5ozs...Thank GOd!!!!
terri galvan <terimickey@yahoo.com>
san antonio , tx usa - Tuesday, December 24, 2002 at 03:26 PM (CST)
Terese,
I read your latest journal entry and once again got chills from your poetic and beautiful writing. I read a book recently (The Lovely Bones by Alice Sebold) that was written in the voice of a 12 year old girl from heaven. I was so moved by her heaven and the peace and beauty she described I couldn't help but think of Charlie. In this book, heaven is what is peaceful and happy for each person. It is a place where loved ones sit on swings and watch what over their families. I see Charlie in heaven with the other kids with playing Legos and talking dinosaurs while great grandparents and mom's watch over and take care of him.

I cannot begin to imagine how difficult this time of the year is for you and I am inspired by the strength and courage you show not only for yourself but for Liam. I feel honored to know you, be even just a small part of your life, and watch and learn what it is like to not only be an amazing mother but an amazing human being. You are an inspiration to everyone who knows you and when you write your book I will be the first in line to buy it!

I wish you love and peace this Christmas and may God bless you all!

An admirerer
- Monday, December 23, 2002 at 11:06 PM (CST)
God Bless your family and your child Charlie. We too have a premature baby and our taking each step at a time. Our prayers go out to you and everyone when else who faces such pain. We know that Charlie is some where safe and happy.
David and Germaine <dahandsomeman@hotmail.com>
Philadelphia, PA USA - Monday, December 23, 2002 at 09:54 AM (CST)
I have a daughter who was born June, 2002, at 31 weeks gestation. I would love to speak with others that have premature children, find out where they are developmentally, and to offer support to anyone going through struggles with their babies, God knows I need all the support I can get!
Aimee <Jaimommy@aol.com>
Tamarac, FL USA - Saturday, December 21, 2002 at 01:46 PM (CST)
Hello Terese and Family,
It's been awhile since I have checked Charlie's site, but he is never far from my thoughts. It is amazing to me how a little boy I never met became such a part of my heart. I hold him there still. I know this holiday is a difficult one for you and your family. Putting coins in Charlie's stocking and then giving them away is a wonderful way to celebrate his life and help others. I wish you all peace this holiday season. Hugs to you all,

Vashti Eppler (preemie-l) <cveppler@easystreet.com>
Yamhill, OR USA - Saturday, December 21, 2002 at 01:38 AM (CST)
I check Charlie's page sporadically, but my heart goes out to you all.
Diane Vaughn (ex-preemie-l'er) <hast_gsm@yahoo.com>
near San Antonio, TX USA - Saturday, December 21, 2002 at 01:03 AM (CST)
I was at Rainbow the other day and saw the Hot and Spicy Cheese-its. Needless to say, Charlie was in my thoughts. Here's wishing a very special family a wonderful Holiday Season with beautiful memories and new traditions (love the idea about coins in a stocking). Peace.
Nancy OT
- Friday, December 20, 2002 at 02:36 PM (CST)
I sat here reading your latest journal entry with tears in my eyes. I can't even begin to imagine to hurt you're all feeling, I won't even pretend to understand. Filling Charlie's stocking with coins to donate is a wonderful idea! Charlie touched so many lives in his short time here on Earth, what a super way to continue touching lives from Heaven. I am certain that Charlie is smiling down on all of you daily. I will keep your family in my thoughts and prayers during this difficult time of year. God Bless you all.
A friend
- Friday, December 20, 2002 at 02:26 PM (CST)
I am a 16 year old girl and I am now doing a report on premature babies and i have learned so much about them and i never realy realized how much of a sturgle not only the baby but the parents of the baby go through i sorry for your loss and i have 2 neices that i have lived with since their birth (almost) and if one of them died i could not think how awful it would be. But for parents of these children who die at birth or shortly after must be awful becuase you have just barley got to know them. my heart goes out to all the parents who have to go through this.
STefanie Gagne <JuStPlAnEbOaRd@aol.com>
N.H. - Wednesday, December 18, 2002 at 05:06 PM (CST)
iam the mother of premature twin boys. they were born at 25 weeks . i have been doing this since april .i just lost my son drew because his little lungs would not get better. ijust got this computer to find out more info my other son has been home since halloween and is still on oxygen. right now in our area there is no support or advice from parents who have been threw this.amy dennison
amy dennison
passekeag, nb canada - Tuesday, December 17, 2002 at 11:33 AM (CST)
Dear Terese, Paul, Liam and Jack,
I saw Trish the other day, and she told me you had some new journal entries, which I have now read. I was so glad to know this, and will keep reading. You are in my thoughts and prayers.
Anne

Anne Stevens <anniet4@hotmail.com>
St. Paul, MN USA - Saturday, December 14, 2002 at 10:58 AM (CST)
I am so sorry for you loss and I wish I could be of more help in saying more words of comfort but I can't as I have never lost a child and I know that there are no words that can express how bad you feel during this time let me pray that one day here soon you can have your dream a healthy and beautiful baby to care and love.
Melissa Hernandez <melissarubiohernandez@hotmial.com>
Columbia, mo USA - Wednesday, December 11, 2002 at 03:17 PM (CST)
I came across this site when trawling the web on advice on the development of premature babies as my daughter was born 4 weeks early at 4lb 11 1/2 oz. After reading all your posts all I can say is I am having it easy as there is NOTHING wrong with her - I am truly blessed - I am just a little paranoid perhaps as she is taking a little longer to reach her milestones! I must say that my heart goes out to all of you with preemies in NICU and ICU. My prayers are with you constantly. I lost two babies through ectopic pregnancies and I am sure Charlie is dancing in heaven with them.
Amrit Kleingeld <amrit@takm.com>
Melbourne, Victoria Australia - Tuesday, December 10, 2002 at 09:55 PM (CST)
i have a baby that was premature she weighed 2lbs 11oz
now she is 5 months and weighes 12lbs 4 oz

veronica quickle <kiairag @aol.com>
clarksburg, wv harrison - Tuesday, December 10, 2002 at 09:17 PM (CST)
i am really sorry for you i have lost lots of cousins over stuff like that
Anna Rodgers
Leon, Ks US - Tuesday, December 10, 2002 at 09:12 AM (CST)
There is a Catskill eagle in some souls that can alike dive down into the blackest gorges, and soar out of them again and become invisible in the sunny spaces. And even if he forever flies within the gorge, that gorge is in the mountains; so that even in his lowest swoop the mountain eagle is higher than other birds upon the plain, even though they soar.

OK, I didn't write that. It's in Moby-Dick. But if you've seen their journal you know it describes every member of this family. Rest easy, Charlie. I'll look for you in the sunny spaces.

Glenn Wright
Freeville, NY - Thursday, December 05, 2002 at 12:51 PM (CST)
As Christmas approaches, I think often of Charlie's family. He was such a sweet boy and you are an incredible family. It was an honor to meet you and work with Charlie. It makes me smile every time I visit your site and see his pictures -- thanks for the memories. God Bless all of you as you journey through this season. My prayers and thoughts are with all of you. Remember there is one more precious angel in heaven this Christmas singing sweet music. God Bless.

Your dietitian friend
- Monday, December 02, 2002 at 10:40 PM (CST)
We are very sorry Charlie has passed away. We are parents of a premature baby boy born at 26 weeks on 11/17/2002 and are just beginning to learn and cope with this situation... life seems to come to a stand-still. God bless you all and may the Lord provide the fortitude to overcome your loss.
Fidel, Soraya and Ryan F. (28 wks now) Algarin <algarin@hotmail.com>
Carolina, PR USA - Friday, November 29, 2002 at 09:11 PM (CST)
You and Charlie continue to be in my thoughts as the holiday season approaches. May you find comfort in your many wonderful memories of Charlie.
Robin, preemie-l member
MA USA - Friday, November 29, 2002 at 01:04 PM (CST)
We finally had the chance to see Charlie's pictures. What a sweetheart! We're glad we "knew" him thru his parents' updates at preemie-l. Our hearts are with you this holiday season.
Sheri, Hugh and Ian (26-wkr) <kidzwrtr@aol.com>
- Wednesday, November 27, 2002 at 01:18 PM (CST)
I have followed Charlie's site for some time now. I have never signed his guestbook, although I have wanted to many times. I don't have a child with cancer (thank god) and have never been affected with childhood cancer in my family. I have young children, maybe that's where my concern for a cure comes from. I must admit, I never expect Charlie to pass away. I knew his surgery was going to be serious but NEVER thought it would be life threatening. I remember checking his site at least daily after his surgery to see how he was doing. Even when things weren't going well, I never thought this monster called cancer would claim his life. I found one CaringBridge site, which led me to others. I have followed several different kids and am shocked at how many of these children have passed on. Your family is never far from my thoughts or prayers. Charlie will forever be in my heart.
A friend
- Tuesday, November 26, 2002 at 08:54 PM (CST)
With turkey day almost here I can't help but picture Charlie looking down with a big plate of turkey, mashed potatoes, stuffing and lots of squishy cranberries with pumpkin pie for dessert. I'm sure that up in heaven even the squishy foods taste great. My prayers will be with your for your first Thanksgiving without Charlie. Have a safe trip back home and all my love to your family...
I miss you all!
Tricia

Tricia <tricia.armstrong@childrenshc.org>
St Paul, MN USA - Monday, November 25, 2002 at 07:09 PM (CST)
Terese,
As always, thank you for the update. I am sure I am not alone in my constant checking of Charlie's page. I miss him so much that checking in and looking at the photos is very comforting. I also like hearing how all of you are doing (even though I talk to you practically every day!:) ). It is also great to see how many people still visit the site and sign the guestbook. It really holds true that "Charlie's story does not end here" and it is great to see how many lives he continues to touch.

Chris <Chrismyrah@frontiernet.net>
Apple Valley, MN USA - Monday, November 25, 2002 at 01:15 PM (CST)
I am so sorry to hear about your loss. I am a NICU nurse and was very touched by your story. May God Bless You and Your Family.
Crystal Holbrook <crystal_holbrook@hotmail.com>
Richmond, VA U.S.A. - Saturday, November 23, 2002 at 03:43 AM (CST)
Dear Therese, Paul and family,
I have been checking Charlie's web page, but there haven't been any new entries for awhile. I hope you all are okay.
Hugs.And to Bill and Carol too.

Lyn Hedlund
Avon, MN - Tuesday, November 19, 2002 at 09:19 AM (CST)
I am so sorry for your tremendous loss. I had been following Charlie's story for some time before he died (just couldn't bring myself to write before now). I was moved by your telling of his journey, and I was charmed (truly) by the delightful pictures of him that you posted on your site. The picture of him with his tomato plants, in particular, will always stay with me. Thank you for sharing the story of your amazing son. I only wish that his story could have ended differently. I hope you find some comfort, however small, in knowing that strangers have been touched by Charlie's life and will not forget him. I pray now peace for you and the rest of your family.
Mother in Illinois
Chicago, IL USA - Monday, November 18, 2002 at 11:00 PM (CST)
I am so sorry for your loss. My son was born October 17,2002, 8 weeks premature. He only weighed 2lb. 2oz. Nolen was read his last rights twice before he was born. I had a problem pregnancy and we were told we would lose him not once but twice. He is our miracle baby but he is still in the NICU and we do not know when he will be home. I hope you and your family know that you have touch my life with your website. God Bless you and you will be in my thoughts and prayers.
Nicole Swendrowski
Milwaukee, WI USA - Monday, November 18, 2002 at 06:33 PM (CST)
i found your website quite by accident i spelt premmie wrongly and ended up on the preemie site,fate maybe because i too lost a little boy joel to liver disease aged 3 1/2 years old and he also had been a premature baby, a 27 weeker he died 2 years ago on december 11 2000 joels sister was only 18 months older than him and misses him badly it was like reading my own website .
can i say how very sorry i am and that time really does heal!
i now have another little boy aged 17 months he was also born at 27 weeks he has had surgery for craniosynostosis and has a gastrostomy but thank god, he is a beautiful child who has brought a lot of happiness.
i would love to hear from you if you have time but i know its still very early days lots of love judith x

judith turner <martin@turner9000.fsworld.co.uk>
west kirby wirral, england uk - Sunday, November 17, 2002 at 03:26 PM (CST)
I just wanted to say, God bless you and your family. I have been reading about Charlie's story for a little while now after stumbling upon it looking for Preemie parent support. My son was born in July 2002 at 27 weeks gestation and spent a long time in the NICU. He is home now and doing well but I know we have a long road ahead of us. Charlie has touched me and my family in so many ways. Our hearts go out to you and your family and I pray for you daily. I am sure Charlie is watching over you and knows just how loved he is. God bless you.
Ashley <Mom2Maggie@aol.com>
Phoenixville, PA USA - Friday, November 15, 2002 at 08:52 AM (CST)
Sorry for the loss of your son.Hope you can recover soon from this dreaded thing that happend.
Rachel <none>
St.cloud, mn USA - Friday, November 15, 2002 at 08:35 AM (CST)
I just happened to stumble across your site and read your story and my heart goes out to you and your whole family. I am a mother of a preemie born at 1lb,12oz (25wks). He will have his first birtday on the 22nd this month and is doing very well. He is on a g-tube and hasn't quite starting crawling yet, but rocking back and forth on all fours. I know that it turns your life completely around and you view everything in this world differently than you did before. I almost hate to admit this, but I don't think I prayed and talked to my Savior Jesus more in my life than I have this past year. Now we daily conversations (I only hope he doesn't get tired of me!!). How can anyone not believe when you see such wonderful miracles he places before us, and gives us the parents strength and patience we never thought we had. God bless you all!! It is not an easy road, but we are special because God choose us to travel it.
I'm here if anyone wants to talk. Sethman1122@Yahoo.com

Brandi <Sethman1122@Yahoo.com>
Dallas, Tx US - Thursday, November 14, 2002 at 03:21 PM (CST)
MY HEART GOES OUT TO YOU GUYS. MY DAUGHTER IS A PREMI. SHE WAS BORN AT 24 WEEKS WEIGHING 2LBS. AND 9OZ. RIGHT NOW SHE IS ALMOST 2 AND GROWING 22LBS AND KEEPING ME ON MY TOES. THE DOCTORS TOLD ME SO MANY THINGS THAT COULD BE WRONG WITH PREMIS. I GAVE IT TO GOD AND HE HAS HELPED ME RAISE THIS HEALTHY UNSTOPABLE BABY GIRL. SHE HAS HAD NO PROBLEMS AT ALL. SHE WAS ONLY IN THE HOSPITAL FOR 51 DAYS. I'M GREATFUL FOR MY PRECIOUS GIFT. GOD BLESS YOU ALL AND YOU ARE IN MY PRAYERS. GOD BLESS YOU.
JENNIFER <GIVINGRACE1217@AOL.COM>
TX USA - Wednesday, November 13, 2002 at 10:43 PM (CST)
Paul,Therese and Family,
I have been following Charlie's story and your family has not left my mind. You are in my prayers and thoughts daily.
Therese I admire your strength, you are a wonderful mother.
Charlie will remain in our hearts forever..


Tammy - Preemie L Member <tammy.hunt@ericeqld.org.au>
Brisbane, qld Australia - Monday, November 11, 2002 at 10:38 PM (CST)
Dear Terese,

I saw a beautiful rainbow arch across the eastern sky, near St. Paul, late this afternoon. Thoughts of your Charlie and his rainbow socks lept to my mind.

With love,

Tami Emmons, preemie-l member
South St. Paul, MN - Saturday, November 09, 2002 at 09:21 PM (CST)
My hushand & I had a Preemie, 10 years ago last August. Even though our little miracle is doing quite well, it still came as the most stressful time of our lives. It still and always will be a unforgetable experiance having a 1# 12 OZ baby. I thank God everyday for giving me this challenge then and now. I also thank God for giving us the challenge of a 2nd child 7 years later. I can not tell anyone who looses a child how they should feel or act. But I can tell the parents of preemie's of today that, it will be the challenge of you life, but mostly our babies lives. Just remember to always look ahead and to never ever give up on your Miracle Baby. My thoughts & Prays are with all those who have experianced a loss, & for all those who are just beginning their challenges.


Angel Alberts <dekotadevil@hotmail.com>
Sioux Falls, SD USA - Saturday, November 09, 2002 at 08:01 PM (CST)
Hi. I don't know you guys but I came across your site from another caringbridge site and just wanted to sign in to let you know that I was here and read your story. This is a difficult journey for you that others can only imagine. I will continue to keep you and your family in my thoughts and prayers during this difficult time. Blessings!
Khalita www.caringbridge.com/nc/khalita Duke Peds BMT aplastic anemia <khalita@hecaresonline.org>
Lexington, NC - Friday, November 08, 2002 at 06:30 PM (CST)
I have never met any of you, in fact, I mistakenly just stumbled onto this wonderful tribute-webpage, while searching for some answers about my friends premature delivery of her baby.

With that said, reading about your beautiful son, though tragic, is incredibly inspiring. Charlies life was short, but he made an impact in this world that few accomplish in an entire lifetime.

Thank you for sharing Charlie with us. Through you, he will be remembered by those who never had the honor of knowing him. I'm horribly sorry for your tremendous loss. I will keep you all in my prayers each night!!

Rhonda Steinhagen <rsteinh2@standard.com>
Rockford, MN 55373 - Friday, November 08, 2002 at 02:26 PM (CST)
good luck to you and your family
kelley
- Friday, November 08, 2002 at 10:59 AM (CST)
Our first child, Arrianna, is currently in NICU. She was born at 24 weeks to the day. She has undergone one surgery and may have one more to come, although the doctor's feel that she is more than strong enough and stubborn enough to outlast us all! Arrianna is now twelve days old and doing well.
Chris Harrison <cpharrison@shaw.ca>
Saskatoon, Sk. Canada - Tuesday, November 05, 2002 at 12:04 PM (CST)
Dear Kiehne Family,
My heart goes out to you with all you have dealt with. I have worked with Opa Kiehne many years and have heard so much about all of you before you were a family and upto now. I have never seen him (Opa) so saddened before. I can only imagine how you must all feel. I am so impressed with your courage and faith. I will keep you in my prayers and thoughts forever.

Julie Smith <smitty2002@mchsi.com>
Osage, IA USA - Friday, November 01, 2002 at 08:43 PM (CST)
Terese, Paul, Liam and Jack,
Your family has offered so many people so much strength and hope. Your precious little boy touched so many lives. Lives that will never meet with yours. He truly had a very special purpose on earth, and I can't even begin to tell you how much his story has meant to me and my family. Thank you for sharing Charlie!

Heather <sequoia_rj@hotmail.com>
Salt Lake City, UT USA - Friday, November 01, 2002 at 03:22 PM (CST)
Dear Paul and Theresa,
I came across Charlies homepage when I was checking on Lachi McAvoy.I have been following Charlies story, and actually posted a month ago, but when I checked, it wasn't there. You tribute to your son is heartwarming. At the time I found out Charlie had passed, we were fighting our own battles here. My grandson, Zack, who would have been 3 on Thanksgiving, had been fighting Hepatoblastoma since February of this year. Hospice started him on a morphine drip at midnight on October 16. He passed away on the 20th. I just had to tell you I came back to your site after Zack passed, because I felt comforted by the way you described his life. I thank you. I hope you keep his site running, so other families may find comfort here. To know they are not alone.
I can only picture Zack and Charlie soaring with the angels.

God Bless you and your family.

Beth Boyer, Grandma to ANGEL ZACK and Jake <Bethcountry54@aol.com>
Joliet, IL USA - Wednesday, October 30, 2002 at 05:44 AM (CST)
Jesus loves me, this I know,
For the Bible tells me so.
Little ones to Him belong.
They are weak but he is strong.
Good night therese. peaceful and healing rest to you.

Lyn Hedlund
Avon, MN - Tuesday, October 29, 2002 at 03:41 PM (CST)
i dont have much to say because i am only 14 years old but your story touched me, and i have great sympathy for you and your husband. i hope you can have better luck in the future.
Jaimie Walsh <jamblebeez@hotmail.com>
perth, wa Australia - Monday, October 28, 2002 at 03:43 AM (CST)
Dear Therese,

Just checking back in on Charlie's page to see how you all are. My heart breaks for you at the description of your quiet house and sudden free time. This is possibly the hardest time coming up for you now - that life is expected to carry on as normal - but it isn't and never will be again.
Carry Charlie in your hearts and may his buffalo strength carry you through!

Love and tears,
Eleanor from Preemie-l

Eleanor. <epdyne@paradise.net.nz>
Wellington, New Zealand - Sunday, October 27, 2002 at 07:07 PM (CST)
Dear Paul and Terese,
You continue to bless us with your courage and wonderful stories. We think of your family and Charlie often.

You may remember that my sister, Chris, and her husband, Mark Hesse, graduated from Carleton in 1992. Chris is 27 weeks pregnant with twin boys, and just learned this week that one of the twins has a serious heart defect and has little chance of survival. Chris will be on bedrest for the remainder of her pregnancy, which will be a particular challenge because she and Mark have two older sons, ages 6 and 2 1/2. As you can imagine all too well, they are grieving already and leaning on the child life staff at United-St. Paul to help explain all of this to their older sons.

If you can stand giving just a little more, I know they would like to talk with you about your experiences with loss, uncertainty, and explaining awful grown up things like death to brothers. I have shared Charlie's story with them. Chris and Mark live in Stillwater, MN. Please email me if you'd be willing to talk with them by phone or email. Thank you.

Nancy Withbroe <withbroen@aol.com>
Washington, DC - Friday, October 25, 2002 at 06:57 PM (CDT)
Hi Paul, Therese and family. I have been wondering if Charlie's web pageis still up, and I'm glad we checked. The little empty bed just touches my heart. As did the tomato plant prayers, the rainbow cake, and others. You are able to express your loss in such tangible language. Not that it hurts any less, but the word pictures are powerful symbols - to represent the face of sorrow. I just told neighbors about Charlie this afternoon. Their granddaughter had brain injury at birth and has many challenges. I have been privileged to assist with some of her patterning exercies. Hugs to all - Bill and Carol too. And don't forget Robin.
jay and lyn hedlund
Avon, - Friday, October 25, 2002 at 06:17 PM (CDT)
Dear Terese, Paul, Liam and Jack:
I was touched by your story. Im from a small country, in central america, and I was looking for a link of information of premature babies. My baby was born 24 days ago,october 1th,2002; she was 26 weeks, she weight 800 grs. She has so many complications, starting with 3 operations of her intestine, infection in her blood, and now a complication with her lung. I don`t know if she`s going to make it, but I still have hope and faith in God and in her, the doctors are surprised of how much she has lasted and how much she is fighting. I`m afraid for her. But we still believe in God and in life. It hurt so much. Thank you for the website, I looked for information and for hope and peace of mind, the doctors speaks in a language I dont understand and I look for information in your website. Thank you and God bless you.

lorena <enzoelorenagalotta@hotmail.com>
guatemala, guatemala - Friday, October 25, 2002 at 11:23 AM (CDT)
Terese, Paul, Liam and Jack,
Count me in with the faithful followers of Charlie's story and page. I check every day for some small hope, as Trisha said, of feeling even the slightest connection to Charlie. I miss him so so much. Your eloquent writing and your faith and strength brings hope and peace to so many of us, even in your greatest hour of grief. You are truly amazing to be able to do that, and for that I thank you. I wish there was someway I could make this easier. I know there is not but I will always be here to listen, walk, sit, whatever can be done. I would also be a very willing babysitter of the ever cheerful Jack and his very creative big brother Liam! If you ever need some time away. I would love to have Liam kick my behind in some board games!

Love Chris

Chris Myrah <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Thursday, October 24, 2002 at 09:06 PM (CDT)
Dear Paul and Terese,

I wish that there were words that would necessarily bring peace and comfort to you and your family. When I see Bill and Carol, I feel like I can't offer much more than a hug and an "I'm sorry." That's what I'd offer you, too.

We, at Westwood Church, continue to ask God to fill the emptiness with His love and tender mercies. I think of you often and notice that God uses those thoughts to prompt me to pray for you.

I do know this...disease, disappointment and death will only be removed from the human experience when Jesus returns to turn the world right side up. We look forward to that, as well as the reunion with our loved ones.

Steve Schoepf, Westwood Community Church, St. Cloud <Steve700@WestwoodStCloud.org>
- Thursday, October 24, 2002 at 04:17 PM (CDT)
Hi Therese, Paul, Liam, and Jack,
Yes, some of us are still here. I was so glad to be able to come to Charlie's funeral and hear his story read by his aunt. It is because of Charlie I met all of you. I had so much fun playing with Liam and Charlie.
Liam, I know you will always remember your brother, Charlie. One of my brothers died when he was little--that was a long time ago--but I can still remember his smile as we played with him. You will always have those fun memories of Charlie. Blessings to you all.

Karen Johnson from Rondo
- Thursday, October 24, 2002 at 04:14 PM (CDT)
I am so proud of you! I read parts of the story, and cried the whole time! It is hard to see your own parents barried, but to have to plan one for your child... WOW. It would be hard!
I will keep your family in my prayers!! Pam :-)

Pam Lane <Lanebpcb@icqmail.com>
Mount Vernon, Wa - Thursday, October 24, 2002 at 02:05 PM (CDT)
Terese,

I am so glad to see you are still writing in Charlie's Jouranl. I still check it faithfully to see how you and your family are doing. You don't know me. I belong to Preemie-l.I have not posted on preemie-l in a long time. But I have read every e-mail about Charlie. And prayed for your family. I still think about you and your family everyday. Charlie will never be forgotten. He has touched alot of peoples lives. From what I have read you are such a wonderful mother. Take care.
Candy
Mom to Seth

Candy <candyseth@aol.com>
IL USA - Wednesday, October 23, 2002 at 08:53 PM (CDT)
Dear Family,
Please know that our prayers are with you. I have followed your little Charlie's story weekly. My 2-year old daughter Rebekah was diagnosed with Hepatoblastoma September 2001. She is currently in remission with monthly visits for blood checkups, but not a day goes by that we do not continue to pray for her and for other children with cancer. I cannot even imagine what life would be like without her. May God give you the strength that only He can give. Thanks for being a blessing to others.
Toni Mason

Toni Mason <staklm@hotmail.com>
Somerset, KY USA - Wednesday, October 23, 2002 at 02:13 PM (CDT)
Terese and Paul: I was blessed to be able to attend the services for Charlie and give you my hopes for peace for you and your family and to say so long to dear Charlie. Although personally knowing him only a few days in June of 2002 his impact on my life was great. My daughter, Jamie, has expressed to you her dismay and sorrow even though she only knew him through you and through my comments to her. She hugs her grandson even tighter these days. As a mother who has lost a child, albeit an older one, your grief is well known to me. No one will take his place, but your tributes to him through your care in the past and your continued love in the future will be known to him...and it will help carry you through the sadness of the days. Liam and Jack are so lucky to have such wonderful parents. Your poise is an inspiration. Your faith and love will help though there is no salve to cure the pain of loss. The love of others will also help. My best to you. Aunt Sandi.
Sandi Suddaby <sandi@sandisuddaby.com>
Sarasota, FL USA - Tuesday, October 22, 2002 at 01:35 PM (CDT)
Terese...
Never fear for there are many of us who check Charlie's page religiously for just a hope of being connected to him. I cannot imagine how different home is for you and my heart aches just imagining it. The other day I came across the video of Charlie that was made during feeding therapy. It brought such a smile to my face just to remember his silly antics and beautiful smile. I'm in the process of making a copy for you for yet another memento of Charlie's short but powerful life. Give Liam and Jack a hug for me and in the infamous words of Charlie "what you just said?"
Love,
Tricia

Tricia Armstrong <tricia.armstrong@childrenshc.org>
St Paul, MN USA - Tuesday, October 22, 2002 at 09:40 AM (CDT)
what a sweet beautiful little man he was. you are very lucky to have such a glorious guardian angel watching over you. take care
Darlene
- Monday, October 21, 2002 at 10:59 AM (CDT)
You and your family are still very much in our hearts and thoughts, we love to continue to follow how you are all doing. Even though Charlie is gone for a time,the great thing is that you can look forward to being with him once agian in heaven. Hang on to that in those dark,lonely times. Take care, and know that many people care and love you.
Dawn <dawn.joyce@childrenshc.org>
Lindstrom, MN usa - Monday, October 21, 2002 at 07:39 AM (CDT)
I was truly saddened to read that Charlies remarkable life was cut short so soon. I too am a mom of a premature baby,we call her our miracle. Your family will be in my prayers
Connie <momoflp@yahoo.com>
Grundy, VA USA - Saturday, October 19, 2002 at 09:45 AM (CDT)
Your family has been in my prayers since we received the letter which Bill and Carol sent out. I'm sorry for your loss but glad you had a chance to share in the miracle of Charlie's life.
Kayleen <kacys30@yahoo.com>
Andover, MN US - Saturday, October 19, 2002 at 08:17 AM (CDT)
I am so sorry for your loss. I am a mother of a premature child 6 yrs ago my son was 25 weeks premture and wieghed 1lb 60z. I can not imagine everythig you have gone through. Because of my special needs child i want to work and help other special need children. God bless you and your family.
Lori <LORRY@METROCAST.NET>
Boston, MA - Friday, October 18, 2002 at 06:34 PM (CDT)
I am so sorry for your loss, you have great strength and wounderful hearts. My son was born preematue and he weighed 1lb 6oz 621 grams. I had him in 1996, he was in the hospital for four months and four days, from august 11 to dec 15 and my due date was nov 19. I had him at 25 weeks, i lived at that hospital and did nothing elese. HE was at the floating hosp for children NICU at new england medical center in boston ma.To this day i love that hospital. My son had lazer surgery and he wears glasses and a double heernea surgery also. and he had BPD .blood transfusions and a hole in his heart,He is doing great now he is in kindergarten it is intergrated,and he gets OT,PT,and SPEECH for therapy.He is a wounderful child and he loves to read and taught himself to swim this summer and i am going to work with special needs children if i did not go though what i went through with him i do not think i would be here today he has taught me alot and made me a much better person and a stronger on to. thank you and god bless you
LORI <LORRY@METROCAST.NET>
ALTON, NH USA - Friday, October 18, 2002 at 06:03 PM (CDT)
I am so sorry for your loss, you have great strength and wounderful hearts. My son was born preematue and he weighed 1lb 6oz 621 grams. I had him in 1996, he was in the hospital for four months and four days, from august 11 to dec 15 and my due date was nov 19. I had him at 25 weeks, i lived at that hospital and did nothing elese. HE was at the floating hosp for children NICU at new england medical center in boston ma.To this day i love that hospital. My son had lazer surgery and he wears glasses and a double heernea surgery also. and he had BPD .blood transfusions and a hole in his heart,He is doing great now he is in kindergarten it is intergrated,and he gets OT,PT,and SPEECH for therapy.He is a wounderful child and he loves to read and taught himself to swim this summer and i am going to work with special needs children if i did not go though what i went through with him i do not think i would be here today he has taught me alot and made me a much better person and a stronger on to. thank you and god bless you
LORI- ANN THOMAS <LORRY@METROCAST.NET>
ALTON, NH USA - Friday, October 18, 2002 at 06:01 PM (CDT)
I cannot begin to imagine the pain that you are going through right now. My prayers are with you and family.
I too have a premature baby born at 23 weeks. She was 1 lb 4 oz.
Although she is doing well, I sometimes feel down becuause she still has a long road ahead.
She is having surgery today to place a central line but I have so much faith everything will be okay.
God bless you!!

Julia <jdiaz@yellowstonecapital.com>
Houston, Tx USA - Friday, October 18, 2002 at 11:59 AM (CDT)
hey you guys i am really sorry that you had to loose your baby like that i bet it was really hard for you. yeah i almost lost my mom also when she was pregnat but they went through sea section as soon as possibole because my mom would have died with my little sister named Karen Little Bear Davis. She was 2 lbs. 13 ounces and she is seven years old now and is very healthy. her birthday in on September 28, 1995. She is really big now. I just wish that you could have watched him grow up and graduate high and college. that would have been a really great thing for you guys. And now I wish you guys the best of luck , and hope you make it through okay. It'll take some time but it will get there. because I just lost my dad recently and I personally know that you guys will be going through som tough times. Oh by the way my name is Sabrina Klatush I am a freshman in Oakville High School and i wish you guys the best of luck. See you later
Sabrina Klatush <N8tv_Sweetheart @yahoo.com>
Oakville , WA Oakville - Thursday, October 17, 2002 at 05:01 PM (CDT)
Terese, Paul,
I cannot imagine what you must be going through during this difficult time. Your faith in God is strong and that will keep you going. My thoughts and prayers are with your family. May God bless Charlie and keep him close to you always until you meet again.

Laura <lbartley@worldnet.att.net>
Hazlet, NJ USA - Thursday, October 17, 2002 at 05:13 AM (CDT)
Terese, Paul and family:

I am just devastated to learn the news but I am inspired to know what a wonderful life you gave Charlie. I wish you all much happiness in the future.

Much love,

Dan

Dan Broun <dbroun@ncmsc.org>
Durham, NC - Tuesday, October 15, 2002 at 08:22 AM (CDT)
Charlie,

I kept hoping that I was going to wake-up from this bad dream and you would be out swinging with Daddy pushing you when I got home from work. Unfortunately it is not a dream, going back to work today proved that it wasn't. I'm going to have to learn to live without being able to physical see you. The memories I will hold so close to my heart. I miss you.


Love, Auntie Heather
- Monday, October 14, 2002 at 08:23 PM (CDT)
God Bless Your Family, Your story is one of love,hope and filled with faith. It makes my journey (I gave birth to a 23 weeker on 8/11), have a deeper meaning. Thank yu for sharing your story.
D. Brice
Yorkville, NY USA - Monday, October 14, 2002 at 07:07 PM (CDT)
I am deeply saddened by your loss. From all that I have read Charlie was an amazing and remarkable child. How blessed you were for the nearly 4 years he graced your lives. You must believe that G-d needed Charlie elsewhere. Maybe to fill the dreamtime of a child whose road is the same that Charlie walked.Even now, can't you feel the memories of Charlie growing bigger,brighter and clearer.
He is truly there to help you thru these tough times.
I am 47 years old and , judging by what I read about Charlie, I hope to be half the man/child he was.
He is walking with G-d.
Jonathan Gilbert


Jonathan Gilbert <jonathan.gilbert@rosssportswear.com>
Minneapolis, Mn. USA - Monday, October 14, 2002 at 02:57 PM (CDT)
I am a new mother of a 7 week old baby boy, and I can't imagine loosing him. I took mine to day care for the 1st time today due to going back to work, and I cried all the way to work, so I can only imagine what you and your family must be feeling. SO my sympathy is with your whole family on your lose.
Melissa Mohl
Beulah, ND Mercer - Monday, October 14, 2002 at 02:17 PM (CDT)
I am a mom of a premature baby. December he will be 2 years!
I thank God everyday for him mom's precious baby boy!

Tanya Sarluis-Meyer <gnpsts@med.uovs.ac.za>
Bloemfontein, South Africa - Monday, October 14, 2002 at 07:53 AM (CDT)
I do feel your pain
Joanne <->
Whiley Bay, - England - Monday, October 14, 2002 at 06:41 AM (CDT)
I have never met you but followed your story. Charlie is an inspiration to us all. God bless your family.

G Wilkes
London, England - Monday, October 14, 2002 at 05:40 AM (CDT)
Gone in body but not in spirit and memory. A special little angel now tending the gardens in heaven. My dad and sister are in heaven also both from cancer and they will put their arms around Charlie and give him a hug each day. My condolences to you all on your sad loss of a dear little boy.
Lyn Reeves <jimlyn@vic.australis.com.au>
Melbourne, Victoria Australia - Sunday, October 13, 2002 at 07:47 PM (CDT)
I am so very sorry to read of Charlie's struggles. I work with Alicia and Heather and can't even begin to imagin what you must be feeling. I do love the ulogy as it is most definatly precious words for all to read. Also Charlie stands as a role model for me, that I would be able to follow his zest for life. I wish for all of you the wonderful memories of Charlie to keep you warm with an eternal light in each that he personally touched and those of us who he never met but still touched. You are special people to have Charlie as a special gift in your lives. You are even stronger people to be able to share Charlie now.
Carrie Lyn Cote from AEFA <ca2rel@attbi.com>
Brooklyn Park, mn USA - Sunday, October 13, 2002 at 02:52 PM (CDT)
I like many of the others who have signed your guestbook never had the chance to meet Charlie. But, thru Grandma Kiehne at work I felt as though I knew him. How great your loss must be. I felt such grief after I read of Charlie's passing. I had heard that Charlie was on numerous prayer lists and it was obvious by how many letters you have received in your guestbook. What a witness you and your family have made. I will continue to pray for God's blessing on your lives......and that he will hold you close and comfort you.
Diane Maxwell <maxwell@ll.net>
Austin , MN - Sunday, October 13, 2002 at 09:12 AM (CDT)
Therese - Even though I never met Charlie the Buffalo, I am saddened and inspired by his story. My thoughts and hopes for peace are with you and your family.
Caroline Worlock Brickman (Carleton '89) <cwbrickman@cox.net>
New Orleans, LA USA - Saturday, October 12, 2002 at 03:24 PM (CDT)
I wish I could find the words to express my sorrow ... instead I will share a story. About a week ago I sat down at the computer to check on Charlie (as I had done daily for a long time) with Kyle on my lap. (Seth and Kyle were in the NICU with Charlie). I spoke of Charlie and explained to Kyle that all 3 of them were in the hospital together and that now Charlie is back in the hospital because he is really sick. I asked Kyle if he would like to say a prayer for Charlie ... he folded his hands and said " God bless Charlie " . I believe that sums up how I feel as well.
Cari Parry <clparry@attbi.com>
Stillwater, MN USA - Friday, October 11, 2002 at 10:34 PM (CDT)
We are friends of Richard and Annette. Earlier this summer she wrote about Charlie and we have been
keeping him in our prayers. We also asked our church to put him on our prayer chain. You all have our deepest sympathy at this time of sorrow. We know how you must feel as we lost identical twin grandsons this summer.
They were 3 months premature weighing in at 2# 7oz. and l# 15oz. The biggest died at birth but little Michael was
giving it a good battle getting up to 2# 4oz before developing 2 strains of staff and passing away at the tender age
3 weeks. We can only know that they are all with our Lord and he will protect them forever.

Dennis & Kay Herold
Ia. U. S. A. - Friday, October 11, 2002 at 07:32 PM (CDT)
Dearest Mommy and Daddy,

When you wonder the meaning of life and love
Know that I am with you,
Close your eyes and feel me kissing you
in the gentle breeze across your cheek,

When you begin to doubt that you shall ever see me again
Quiet your mind and hear me,
I am in the whisper of the heavens
Speaking of your love.

When you lose your identity
When you question who you are and where you are going,
Open your heart and see me.
I am the twinkle in the stars smiling down upon you,
Lighting the path for your journey.

When you awaken each morning
Not remembering your dreams
But feeling content and serene
Know that I was with you -
Filling your night with thoughts of me

When you linger in the remnant pain
Wholeness seeming so unfamiliar
Think of me and
Know that I am with you,
Touching you thru the shared tears of a gentle friend
Easing the pain

As the sunrise illuminates the desert sky
In the breathtaking glory, awaken your spirit
Think of our time, all too brief, but ever brilliant.
When you were certain of us, together
When you were certain of your destiny

Know that God created that moment in time,
Just for us
Dearest Mommy and Daddy, I am with you always.


Cathy
- Friday, October 11, 2002 at 02:21 PM (CDT)
Dear Charlie,
You would have been so proud of Liam yesterday. He was the perfect big brother making sure all the guests at the church had a slice of your rainbow cake. There were so many tears, but also some smiles as everyone remembered the Charlie they knew and loved.

Chris <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Friday, October 11, 2002 at 11:39 AM (CDT)
After looking at your pages and seeing the pictures of Charlie, I had to laugh at the one where he is trying to "escape" Being a mother of a preemie(27 weeks) I also have a picture of my son trying to "escape". My prayers go out to you and your family at this time. God will bless Charlie.
Lisa <casianostheone@aol.com>
Bpt., Ct United States - Friday, October 11, 2002 at 11:11 AM (CDT)
I have had the pleasure of meeting this little man and he always has a smile for everyone. He will be truly missed by all whose lives he has touched!
Paula Wright <wrightplace65@msn.com>
St Paul , MN USA - Thursday, October 10, 2002 at 10:49 PM (CDT)
Paul, Terese & Family
I am so very sorry for your loss. We have never met or even talked but I felt I knew all of you. Our friend Chris M. talked often of Charlie and his family. I just wish my son Devin and I had the chance to know all of you. You will be in our thoughts and prayers.

Neal, Jodi & Devin Dixon <njdd5@yahoo.com>
Alexandria, MN - Thursday, October 10, 2002 at 10:03 PM (CDT)
Paul.Terese and family
You probably don't know who I'm but I know Pauls folks really well-they were my neighbors when I was growing up in Harmony.Very nice people-Tim is my manger at the Preston Iga-I'm really glad Tim shared Charlies life with me-I didn't get to see Charlie only pictures-he looked liked a fighter-and who could not love him.
My name is Pat(Johnson)Hovey-My family and my self are thinking of you and keeping your family in our prayers.
Just look beyond today for blessings, Look past the skies of somber grey,and look beyond the trials and heartaches. When god will turn your night to day.Dear ones,just trust Him in the shadow.He wants the very best for you. He'll walk beside you in the valley,His grace and love will see you through.Just look beyond today for blessings.In Gods time he will reveal to you,the many joys that are awaiting.The joys He's chosen for you and your family. So, don't give up, keep on believing-there's happiness ahead for you Soon God will turn your trials to triumph and skies again will shine bright blue-I know it all takes time-but we will be praying for you and your family through this difficult time-Smile God Loves You All- Love, Duane, Pat, and Matt Hovey

Duane, Pat, And Matt Hovey <hoveysbelgians@hotmail.com>
Preston, Mn. Fillmore - Thursday, October 10, 2002 at 09:09 PM (CDT)
Terese,
I am so sorry for your loss. Please know that I am thinking of you.

Jenny Larsen
- Thursday, October 10, 2002 at 09:08 PM (CDT)
May it bring solace to know how many lives have been deeply touched by Charlie in his brief time here on earth. Your family is in my prayers.
Jay Ophoven
St. Cloud, MN USA - Thursday, October 10, 2002 at 08:52 PM (CDT)
Hi, my name is Dennis and my daughter Jade has been fighting this disease since April 2, 2002. I'm sorry that you didn't get the outcome that everyone was praying for. Charlie gets to watch over you now. There is no cancer where he's at now. May he rest in peace.
God bless you all,
Dennis

Dennis Collins <djcis1@netzero.net>
hainesville, il U.S.A. - Thursday, October 10, 2002 at 11:35 AM (CDT)
Dear Paul, Terese, Liam, and Jack,
We are so terribly sad to hear of Charlie's passing. He was such a bright, delightful little boy...what a charmer! We pray that you find comfort and peace of mind from God as you grieve. Lily and I talked about Charlie and our time at Rondo last night and her face just lit up. We will all miss him. With love, Jessie, Mike, Lily, and Audrey Fredricksen

Jessie Fredricksen <Jfred511@aol.com>
St. Paul, MN - Thursday, October 10, 2002 at 10:13 AM (CDT)
Dear Terese and family,

We are so sad to hear of your beautiful boy's passing from this life. Charlie could teach us all a lesson in courage, spirit and joyfulness. Thankyou for sharing his being with us through Preemie-L. Our loving thoughts are with you and your family now and always, Anne, Gary, Jessica and Vincent

Anne Casey <annec@vicnet.net.au>
Melbourne, VIC Australia - Thursday, October 10, 2002 at 06:22 AM (CDT)
Dear Terese, Paul, Liam and Jack

I am so sorry for your loss.

I will think of Charlie every time I water the tomatoes.


Rachael (preemie-l)
Auckland, New Zealand - Thursday, October 10, 2002 at 04:42 AM (CDT)
We are thinking of you and keeping your family in our prayers.
Kimberli Johnson <bdjohnson@usfamily.net>
Lino Lakes, MN USA - Wednesday, October 09, 2002 at 03:39 PM (CDT)
If, as you, Terese, wrote so movingly in one of your earlier entries, Charlie's spirit was indeed camped out somewhere those past difficult days, what I'm sure he saw was that you (and hundreds others) loved him without measure and that you never gave up hope. His spirit was indeed a bright shinig light and I hope this light can be a guide and comfort to you as you go forward with him now forever in your hearts. My prayers will be with you and your family.
Pat Schaffner, Parents for Parents <Pat.Schaffner@childrenshc.org>
St. Paul, MN USA - Wednesday, October 09, 2002 at 03:19 PM (CDT)
Dear Terese and Paul,
You know that our hearts are breaking along with yours because Charlie's earthly story ended too soon. We take comfort in the assurance we have in scripture that Charlie's story will go on eternally as he rests in the arms of God. Hold fast to each other and to your strong faith as you deal with this pain that will never go away, and this void that can never be filled. Continue to bathe Liam and Jack in your steadfast and abiding love for them. Find comfort in knowing that you are loved and cherished by your parents, family members, and your many friends. Charlie's story has had an impact on untold numbers of people, and your strength in the face of adversity has been an inspiration to many, many people. We all wish it could have ended differently. Grandma and Grandpa Lewis

Carol and Bill Lewis <blewis65@aol.com>
Cold Spring, MN - Wednesday, October 09, 2002 at 01:43 PM (CDT)
I am so sorry to hear about the loss of Charlie. What a brave little boy. My thoughts and prayers are with you and your family. May God give you the strength you need in the days ahead.
Lisa Vouk <lisav@ramorton.com>
St Stephen, MN USA - Wednesday, October 09, 2002 at 01:42 PM (CDT)
I'm really sorry for your lost. Charlie and your family and friends will be in our prayers.
Vinnie Sostre & Family <vinnies3@hotmail.com>
Anderson, SC USA - Wednesday, October 09, 2002 at 10:59 AM (CDT)
Terese, Thanks for sharing Charlie's life with me through the preemie-l list. I will always remember him and he and your family, especially Liam, will be in my thoughts. I wish you strength to get through this difficult time.
Nola, Brownen's mom
Madison, WI USA - Wednesday, October 09, 2002 at 09:58 AM (CDT)
My thoughts and prayers are with you all through this very difficult time. God bless.
Cassie Henry (Alicia's friend)
- Wednesday, October 09, 2002 at 08:36 AM (CDT)
Kiehne Family,
I am so sorry to hear about your loss. You have been, and will continue to be, in my thoughts and prayers.
God Bless.

Tina Dale
Burnsville, MN - Wednesday, October 09, 2002 at 08:31 AM (CDT)
Terese and family - Your courageous battle has not been lost. Charlie lives on in all of us. Our hearts and prayers are with you. God Bless you!
Viv, Scott and Elora Engebrit ('99 NICU grad) <vivian.engebrit@thrivent.com>
Savage, MN USA - Wednesday, October 09, 2002 at 08:00 AM (CDT)
We are sorry for your loss and send our sympathy at this time of sorrow. May God comfort you and keep you in his grace.
Gary Kuehnast <garyjet@trvnet.net>
Humboldt, Ia usa - Wednesday, October 09, 2002 at 06:56 AM (CDT)
I have been following Charlie's brave battle - what a courageous little boy - as my son has also battled hepatoblastoma (Regan Leatch). I am so very sorry to hear that Charlie passed away. I cannot put into words the emotions I feel for you. My heart goes out to all your family.
Pam Leatch <leatch@bigpond.com>
Sydney, NSW Australia - Wednesday, October 09, 2002 at 04:52 AM (CDT)
What a blessing Charlie has been for all of you. My Heart goes out to your whole family. I will keep your family in my prayers. May the Lord hold you in the palm of his hands. God Bless
Ellen Petersen <clelpete@charter.net>
Austin, MN USA - Wednesday, October 09, 2002 at 03:34 AM (CDT)
God looked down on the earth to select two very speical parents for His dear child, Charlie. God smiled and said, "Ah yes, Paul and Terese will love and cherish Charlie for the true gift I have created". May God's love repair your hearts and fill them with beautiful memories, hope and peace.
Flo Harris <floharris01@msn.com>
Stillwater, MN USA - Wednesday, October 09, 2002 at 12:55 AM (CDT)
Many times since we spoke at the NICU conference in September, Terese, I have thought of that photograph of Charlie you were wearing on your name tag. It was such a sunny, positive picture, it made me grin just to look at it. This morning I heard that Charlie had passed away. I am sorry for all you have gone through and so sad that you have had to say good-bye to this boy of joy. I am weeping, but I am also remembering the absolutely original Charlie that you have described so eloquently to your friends over the years. I will be praying for you all, and envisioning a time when you will hold each other again.
Shelly Barsuhn <rbarsuhn@barsuhn.com>
Minneapolis, MN - Tuesday, October 08, 2002 at 10:46 PM (CDT)
Dear Terese, Paul Liam amd Jack,
My heart goes out to all of you......Though we have never met and never spoken directly I feel I have come to know you through PreemieL......
Dearest Charlie.......This was a battle I longed for you to win......I pray that you are at peace and free......Fly Charlie Fly!
To all of you.....my deepest sympathies....my regrets at not being able to come to the funeral......know that I will be there i my heart and soul......Love and peace,
Michelle, Sean, Aidan and Devlin Crooks

Michelle Crooks <crooksbums@aol.com>
Wasaga Beach, Ontario Canada - Tuesday, October 08, 2002 at 10:23 PM (CDT)
Dear Terese, Paul, Liam and Jack: After talking to you this AM, I spent a very disjointed day seeing kids--still just numb with sadness and wory for you all. (As I gave a little boy a language test, I tucked a big teddy under his chin for comfort...He lost his Dad a year ago). Just mailed original photos from our wedding--wonderful images of Charlie, Liam and Beverley. Black and white and color, ready to illuminate your memories. Should arrive Thursday. We're thinking of you constantly, knowing that friends and family are there. We are there in spirit. Love, Margot
Margot and Andrew Mason-Jones <mmisfit@webTV.net>
Phoenix, AZ - Tuesday, October 08, 2002 at 08:15 PM (CDT)
We will continue to pray for you and your family at this very important time in your lives. Thank you so much for sharing Charlie's life with others-- with peolple who find comfort in your strength as a loving family. A new challenge is here and Charlie's spirit will help you through it. Lots of prayers from the Pavloski family.
Jan, Gary and Jaylen Pavloski <pavloskij@ellsworth.k12.wi.us>
Maiden Rock , WI US - Tuesday, October 08, 2002 at 07:41 PM (CDT)
You don't know me, but I know Charlie's grandma Annette. How your hearts must ache at the loss of your precious child. In the midst of the sorrow, I pray that you will be touched by the power of God's comfort and that you can find some peace, knowing your dear child is safe and comfortable in a place more beautiful than anything we can imagine.
Carolyn (Nagel) McElfatrick
Deer River, MN USA - Tuesday, October 08, 2002 at 07:39 PM (CDT)
I'm sorry to hear about Charlie. I truely know what you guys are going though. I lost my first born at age 3 months. If you ever need to talk you can e-mail me at Candybabyadam@aol.com or you can phone me at (256)820-1301. My heart and prayers go out to you and your family. Remember he is no longer in pain he is in Heaven playing and singing with all of the other little angels.
Candy Ireland <candybabyadam@aol.com>
Weaver, Al USA - Tuesday, October 08, 2002 at 07:24 PM (CDT)
I'm so sorry to hear about Charlie. Even though I didn't know Charlie, I can tell how special he was. Reading his story has touched my heart. My family will pray for yours. God Bless You...

Athena, Chuck, Megan, & Jacob

Athena <ashrum9902@hotmail.com>
Gruetli Laager, TN 37339 - Tuesday, October 08, 2002 at 06:45 PM (CDT)
Charlie has been a blessing to our family. We loved him dearly and wanted a long life for him, but God wanted Him more. He was such a joy, so intelligent, a bright mind, a vocabulary you wouldn't believe, loving. Thank you to each of you who are keeping Paul, Terese, Liam, and Jack in your prayers plus the rest of us. It is so great to know some day we will see him again in heaven (our God is a great God)whole and well. We praise Him for sending Charlie to us to love and cherish these almost four years. Thank you again for your thoughts and prayers. Opa and Oma (Grandpa and Grandma in German) Kiehne
Richard and Annette Kiehne <rckiehne@smig.net>
USA - Tuesday, October 08, 2002 at 05:36 PM (CDT)
Paul, Terese, Liam, and Jack - My heart goes out to all of you. I wish you strength and hope in this terrible time.
hugs,Sharon

Sharon Stern <sstern@wisc.edu>
Madison, WI - Tuesday, October 08, 2002 at 05:27 PM (CDT)
Dearest Angel Charlie:

If tears make flowers grow, heaven must surely be a rainbow of colors today. I was praying that you would win this battle, but it seems that God has different plans for you.

Charlie, I only wish that I’d had a chance to meet you. You were such a brave little boy – a real trooper. Your Grandma Carol and I are first cousins and she has told me so much about you. Your mom probably doesn’t even know this, but when Grandma Carol and Grandpa Bill got married many years ago, I was at their wedding. We’ve always had a special bond.

My heart goes out to your family and friends, and especially to your older brother Liam. I’ll keep on praying for all of you.

Love,

Your Third Cousin Reggie Lundin
Burbank, CA





Reggie Lundin Peters <rlundin2@earthlink.net>
Burbank, CA USA - Tuesday, October 08, 2002 at 05:22 PM (CDT)
Paul,Terese, Liam, & Jack.
We are so sorry for the loss of your son. I can't say that I know how it feels on losing a child, but I know that it would be hard. Our hearts and prayers will be with you. Let Liam know that Eric Jr. says Hello. He enjoyed playing with him at Matthews birthday party.
Eric, Melissa, Eric Jr., & Emily Geisthardt(Tim & Julie Kiehne's niece & nephew-in-law)

Eric & Melissa Geisthardt <meeeg@charter.com>
N Mankato, MN - Tuesday, October 08, 2002 at 04:52 PM (CDT)
Terese, Paul, Liam and Jack,

I will remember to pray for all of you over the comming months.
God bless

Genevieve Tyykila <styykila@netzero.net>
St Paul, MN - Tuesday, October 08, 2002 at 04:41 PM (CDT)
Terese, Paul, Liam and Jack,
I pray that God will wrap his strong arms around you and bring you strength and comfort. Although I never knew Charlie it's very apparent that he was quite the inspiration and wonderful, fiesty child. Find strength in knowing that he is dancing with Jesus, painfree.


Leslie Jensen & family (friend of Heather's)
- Tuesday, October 08, 2002 at 03:23 PM (CDT)
Terese, Paul, Liam and Jack,
I don't know how to express how sorry I am for the loss of Charlie. I wish there was some way, any way, that I could help take away some of the pain. I know there is not, but I want you to know I am praying for you all, thinking of you constantly and mourning Charlie deeply. I imagine him in Heaven eating a steak dinner with macaroni and cheese on the side, and enjoying every mouthful. Charlie will be missed and will be part of my heart forever.

Chris <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Tuesday, October 08, 2002 at 02:56 PM (CDT)
I have been thinking of Charlie and your family and praying for you all since I learned of his illness. Even though his time was far too brief, how lucky you all were to have him and to have each other--what an incredible little boy! I hope that your family finds comfort in the closeness that you share and in your loving memories of Charlie.
Erin Getty (friend of Alicia's and Heather's) <egetty5@cs.com>
Coon Rapids, MN - Tuesday, October 08, 2002 at 02:48 PM (CDT)
God bless Charlie, his family, and all who mourn.
Scott Kasierski, Cathy Kanaday, and Thomas Kasierski <skasierski@wwac-law.com>
Hopkinsville, KY USA - Tuesday, October 08, 2002 at 02:36 PM (CDT)
Since we heard from Bill and Carol yesterday, I keep finding myself in tears over Charlie. From the beginning of his life we have known Charlie was special through Bill and Carol. It was easy to see the joy he brought to your family from the charming stories we were often told. Charlie's strong spirit, which he no doubt inherited from his parents and extended family, will remain a lighthouse for how life should be lived. We continue to lift you up in our thoughts and prayers.
Kate and Josh Austad <theaustads@hotmail.com>
Cold Spring, MN - Tuesday, October 08, 2002 at 01:17 PM (CDT)
Dear Terese, Paul, Liam, and Jack,

I share in your sadness over the loss of Charlie. He'd been through so much. I know he holds a special place in each and every heart on Preemie-L. I'm thinking of all of you.

With Love,
Nancy

Nancy Redheffer <nredheffer@yahoo.com>
Glen Ellyn, IL USA - Tuesday, October 08, 2002 at 01:03 PM (CDT)
Paul, Teresa, Liam and Jack,
We are so sorry for your loss, our prayers and thoughts are with you. God bless your family.

Bill, Sharon, Eloise, Kira & Nicole <sharonrombeau@hotmail.com>
Toluca Lake, CA USA - Tuesday, October 08, 2002 at 12:25 PM (CDT)
Dear family,

You don't know me and I only know you becasue I have been praying my heart out for you.

Sometimes the Lord allows things to happen that make no sense. I am just thinking of the place that the Lord prepared for Charlie. Charlie said he was tired of being me . . . that brought tears to my eyes. So little, and so tough, thank you Jesus for taking Charlie away from the struggles.

King David fasted and prayed while his son was deathly ill. His son died and David got up and washed his face. His servants asked why do you rise now that your son has died? David replied that he prayed hoping that the Lord would heal his son. Since he died there was no longer a reason to fast and pray, but to live his life.

I ask that you look at your sons. That you make life wonderful for them, that your tears be turned into joy. Charlie is dancing in heaven with the Lord Jesus. Praise God. So painful for our loss yet the outcome is so amazing for him.

I pray that the Lord keep you.

In Christ's Love,

Jessica

Jessica Rogers <jessie_rogers7@hotmail.com>
Eagan, MN USA - Tuesday, October 08, 2002 at 12:15 PM (CDT)
Although I never met Charlie, I feel great sorrow. The body can only take so much, but the spirit lives forever. God bless you!
Marianne Morales
- Tuesday, October 08, 2002 at 12:05 PM (CDT)
My prayers are with you in this time of need. I'm so sorry for your loss.
Lissa
Ottawa, Canada - Tuesday, October 08, 2002 at 11:54 AM (CDT)
Dear Paul, Terese, Liam and Jack,
We are friends of Charlie's Grandparents, Bill and Carol. The past couple of years we have heard about Charlie. Their faces beamed with excitement everytime they spoke of him. Our deepest sympathy goes out to you and your whole family. You have all been great inspiration, and little Charlie has been such a gift to this world and will be in heaven as well. We will continue to pray for all of you.

Mark and Tammy Lindell <mlindell1@uswest.net>
Sartell, MN USA - Tuesday, October 08, 2002 at 11:36 AM (CDT)
Dear Terese, Paul, Liam and Jack,
Our hearts are breaking for all of you. Thank you for sharing Charlie and your faith with us through this site. He has brought joy and hope to more people than you will ever know. Charlie, Ben and Peter would love to have your spirit come play with us.

Nancy, Ben & Peter Withbroe and Paul Smolinsky <withbroen@aol.com>
Washington, DC - Tuesday, October 08, 2002 at 11:12 AM (CDT)
Words cannot express the vast emotions I am feeling for all of you right now. As I read through your journal entries I am utterly amazed at the strength and courage of your entire family. Without knowing it, you have taught me much about life. And although Charlie's time with us was short, he touched more people's lives than you could ever imagine. I hope that you find comfort in knowing that Charlie is now in a place that knows no pain. I will continue to pray for all of you, that God may carry you through this time of pain and suffering.
Lisa Pehler (friend of Heather's)
- Tuesday, October 08, 2002 at 11:07 AM (CDT)
My heart and prayers go out to your and your family.
Sue Trondson, friend from Aveda children garden <strondso@aveda.com>
- Tuesday, October 08, 2002 at 10:36 AM (CDT)
Weren't you fortunate to have little Charlie the buffalo in your lives!! Please accept our sincerest condolances and sympathies.
Kathy, Bart and Maggie Elliott <ktomme@aol.com>
Arlington, TX USA - Tuesday, October 08, 2002 at 10:33 AM (CDT)
I am so very sorry for your loss. My prayers are with you and your family.
Joann Loeffler
Royal Oak, MI USA - Tuesday, October 08, 2002 at 10:27 AM (CDT)
I am so sorry for your loss. My thoughts are with your family in this time of sorrow.
Amy ~preemie-l <ahabighorst@hotmail.com>
Port Orchard, WA USA - Tuesday, October 08, 2002 at 10:22 AM (CDT)
My heart breaks for all of you. And yet you continue to amaze and ispire me as you find the strength through your faith to even keep breathing in and out. It's apparent to me that Charlie shared that same strength - and I pray that God is providing it to Jack and Liam as well. Liam, I am so sorry your best friend had to leave so soon. But I know he's watching over you and still lives with you in your heart. My prayers are with all of you. Charlie, you've made such a difference, even to those of us who never met you. Thank you for that. Be at peace.
Jamie (Lynn) Chatari <jchatari@computertech.com>
Houston, TX Harris - Tuesday, October 08, 2002 at 10:06 AM (CDT)
I am so sorry about your loss of Charlie. My prayers go out to your entire family. My family, including girls Lily and Juliette have been praying for Charlie since he began his illness. Know that more people than you imagine are keeping you in their thoughts and prayers. Love, Shannon (Friend of Alicia's) and family.
Shannon Tolzin <shanansky@juno.com>
Minneapolis, MN USA - Tuesday, October 08, 2002 at 09:55 AM (CDT)
You and your family are in my prayers. May God comfort you and bring your family peace during this time.


Donna Wishon <stokesfsn@earthlink.net>
King, NC USA - Tuesday, October 08, 2002 at 09:07 AM (CDT)
Dear Terese, Paul, Liam and Jack
I am very sorry for your loss. Charlie was such a fighter. Life will never be the same.

Bonnie mom to Danny and Katie <bprestin@tir.com>
Birch Run, MI USA - Tuesday, October 08, 2002 at 08:58 AM (CDT)
I can hardly see through the blur of my tears. May God's great peace be with you today, tommorrow and all of the many long days to come. If ever you are lonely, know that we are still thinking of Charlie's bright smile, and giving you hugs from miles and miles away...
Melissa Brock
TX USA - Tuesday, October 08, 2002 at 08:47 AM (CDT)
Dear Terese,Paul,Liam and Jack,
Thoughts and prayers with you. I have followed Charlie's battle on Preemie-l. I am so sorry.
((hugs))

PeggyP
- Tuesday, October 08, 2002 at 08:44 AM (CDT)
Charlie, your spirit is welcome to come play at Calvin's house anytime. We'll toast you with Doritos and juice and remember your irresistible giggle. We'll help all these good folks look out for your family. We miss you terribly.
Sue, Craig, Calvin and Rosalyn
Roseville, MN USA - Tuesday, October 08, 2002 at 08:36 AM (CDT)
We are so terribly sorry for your loss, our thoughts are with you all! God Bless you Charlie -- enjoy that next adventure of yours........
Natalka & Lisa at Amex
Minneapolis, MN - Tuesday, October 08, 2002 at 08:11 AM (CDT)
Dear Terese, Paul, Liam and Jack,
We are so very sorry for your loss of Charlie. He will always be in our hearts. You have honored him so well by your love, faith, devotion. Our prayers are with you.
Joan and Gary

Joan Hershbell <jhershbe@visi.com>
St. Paul, MN USA - Tuesday, October 08, 2002 at 08:11 AM (CDT)
I'm so sorry. My heart and prayers are with you all.
Nancy Simmet
- Tuesday, October 08, 2002 at 07:39 AM (CDT)
I am so sorry for your loss. I am the mother of a Summer 99 baby and can't imagine the pain you are suffering. Know Charlie is in a much better place where he feels no pain and can run and be a kid forever with God watching over him. He's your angel.
Leslie Sellers <LSellers@mail.dos.state.fl.us>
Tallahassee, Fl US - Tuesday, October 08, 2002 at 07:35 AM (CDT)
Words cannot express the feelings I am feeling right now. I have been following Charlie through Preemie-L, thank you for sharing a little bit of him with us! May God give you the strength you need to get through! - Hugs! Michele
Michele and Family <screeves@charter.net>
Greenville, SC - Tuesday, October 08, 2002 at 06:56 AM (CDT)
Our thoughts and prayers are with you all, god bless.
Terri-Ann and Nicholas Lamond
Bateau Bay, NSW AUSTRALIA - Tuesday, October 08, 2002 at 02:45 AM (CDT)
Sincerely heartfelt hugs in your time of sorrow..
Katherine (mom) Erik (9.29.99) Magnus (6.27.01) Naomi (12.7.90) Krystal (9.25.85)Jasmine (9.25.85) <kat@ausome.com>
http://www.wretchedheathen.com, tx USA - Tuesday, October 08, 2002 at 12:19 AM (CDT)
Terese, Paul, Liam, and Jack...I was so stunned when I read the news of Charlie's passing today...I've known about him for such a brief time, and yet, his life touched mine greatly from your journal entries as I read what my very distant cousin was going through. I will continue to pray for all of you as I have prayed for Charlie through the last few weeks, and I hope you will be able to find some comfort and peace from all of this. I can only imagine the pain of losing a child, or even a sibling...I've never had to face that, and I can only tell you how amazed I am at the strength of your family. Although it may not seem like it at the moment, you have truly been blessed to be able to make it through as much as you have. I hope some day I can meet you and tell you how much the story of Charlie's life and your continuing faith has touched me. May God bless and keep you as he gazes lovingly on his newest Angel!
Rachel Johnson-Oliver <rachel@blackhat.org>
Aiken, SC United States - Monday, October 07, 2002 at 11:51 PM (CDT)
Paul, Terese, Liam and Jack,

We extend our sincerest condolences to you and your family.
May your family grow closer as you face the future without Charlie.
Hold on to each other for strength and surround yourselves with love and memories.

Charlie, we will always remember you.
You touched many lives around the world.


Olga, Rob, Robby and Mikey <aguila4@bellsouth.net>
Miami, FL US - Monday, October 07, 2002 at 11:35 PM (CDT)
Dear Terese, Paul, Liam, & Jack

I just read the news and I wish I could turn my tears into strength and courage for you all. Thank you for the generosity with which you always shared Charlie and your family with the rest of us. I'll continue to pray for him, God's wonderful new Angel, and for all of you, so that you can make it through the next few days, weeks, years. We're here for you all.

Stella Bialous (from preemie-L) <stella@bialous.com>
San Francisco, CA - Monday, October 07, 2002 at 09:51 PM (CDT)
Terese and family, My heart just broke when I checked in on Charlie to see how his day was. May God give you strength to live the days ahead without Charlie. Knowing he will always be your angel may bring some peace, but he will be missed so deeply. We will be praying for you...

Kellie Janssen
Scott and Ari too

P.S. I was on the life after the nicu committee with you before Charlie became ill. We will continue to wish Gods healing on you all...

K Janssen <skjanssn@rea-alp.com>
Alexandria, MN - Monday, October 07, 2002 at 09:21 PM (CDT)
Dear Paul, Terese, Liam and Jack,

Though I don't know you personally, I have followed dear little Charlie for a while now because of my own child who had hepatoblastoma. I was so deeply saddened and shocked to read this page tonight. I weep for you and with you. I guess heaven needed a buffalo and Charlie went charging. You will all be in our prayers.

Catherine Washington <tomcatwash@aol.com>
Charlotte, NC USA - Monday, October 07, 2002 at 09:04 PM (CDT)
Paul, Terese, Liam, & Jack: As before, our prayers are with you. I received the news from your mom, Paul, and was shocked. I know that Charlie had some special angels meet him as he entered heaven today. I will continue to pray for God to give you all the strength and endurance that you will need in the days to come. As is evident by the guest book, you have many people that will be still praying for all of you. Till we see you, your constantly in our thoughts and prayers. The Koob/s
Rick, Renee, Kaycee, and Ryan <kkranch@goldfieldaccess.net>
Humboldt, IA US - Monday, October 07, 2002 at 07:56 PM (CDT)
Paul, and Terese, Liam and Jack;
We just got the news from Bill and Carol, and are still in shock, and in tears. Charlie sure touched our lives in a very deep way. You all are in our prayers, and our hope and praryer is the God of all comfort will make himself very real to you during this very sad time. Special prayers for you, Liam, and you Jack also. And Cousin Max.

jay and lyn hedlund <lynhedlund@myexcel.com>
avon , mn usa - Monday, October 07, 2002 at 07:22 PM (CDT)
Charlie, although I never met you personally, you have had a special place in my heart from the very beginning of your life. When you left for heaven today, you took that piece of my heart with you. Heaven only knows how this world needs another angel.
Turn Again to Life ~
If I should die and leave you
here awhile,
Be not like others, sore undone,
who keep
Long vigil by the silent dust
and weep.
For my sake turn again to life
and smile,
Nerving thy heart and and trembling hand
to do
That which will comfort other souls
than thine;
Complete these dear unfinished tasks
of mine,
And I, perchance, may therein
comfort you.
~Mary Lee Hall~

Sara Hayden <sarahayden@charter.net>
Austin, MN United States - Monday, October 07, 2002 at 07:09 PM (CDT)
Charlie,
We will always love you and be so grateful for the way you have touched our lives. We will NEVER forget you.

Chris, Jim, Allison and Justin Myrah <Chrismyrah@frontiernet.net>
Apple Valley, MN USA - Monday, October 07, 2002 at 07:05 PM (CDT)
Charlie...
Heaven is a brighter place today because you have joined the party. I cannot begin to think about how much you will be missed here by everyone who knew and loved you, especially your family. Keep an eye on Liam and Jack, they need you. Keep your arms tight around your mommy and your daddy, I cannot begin to imagine their grief. It's hard to believe that in the 4 short years you were with us you brought such love, peace, joy, happiness, laughter and fun to all those around you. Your pictures are on my desk where they will stay forever. I will miss you more than you know and will love you always!
Love, Tricia

Tricia Armstrong <tricia.armstrong@childrenshc.org>
St. Paul, MN USA - Monday, October 07, 2002 at 06:58 PM (CDT)
Charlie;
I had a meeting in the cities last week and left early so I could stop in to see you,and your folks or grandparents...whoever was there at the time with you. It was a real early morning for me and I thought I was doing good by making it to the hospital by 7 a.m.(from St. Cloud). I was shocked to hear that you weren't in the ICU. I asked again, certain you had to be there, afterall, everyone knows Charlie! Unfortunately, I had the wrong hospital---Minneapolis Children's, not St. Paul! The joke was on me! Like I said, it was an early morning. Anyway, all of us prayer warriors from Westwood are still praying for you and won't give up until this whole ordeal is over. This web page is the best thing for all of us to keep up on the day to day changes and prayer requests. I look forward to seeing you soon...at St. Paul Children's!!!
Peter Lindbloom

Peter Lindbloom <plindbloom@astound.net>
Sartell, MN USA - Sunday, October 06, 2002 at 09:56 PM (CDT)
I was reading the archives of Preemie-L and noticed a post you made a few months ago. I am a former member of p-l and mom to a survivor of hepato stage 3. Just wanted to say "Hi!" I hope Charile is doing well, I will keep him in my prayers.
Barb Cook <barbngreg@earthlink.net>
Grayslake, IL USA - Sunday, October 06, 2002 at 08:33 PM (CDT)
Dear Charlie,
I hope you get well. Love,

Liam

ps There's a present for you in the living room. It's in a bag with lots of dinosaur pictures on it! The names of the dinosaurs are the tyranosaurus, dimetrodon, stagosaurus and pterodon.

Liam
St. Paul, MN - Sunday, October 06, 2002 at 08:52 AM (CDT)
May God keep all of you strong and filled with hope to help Charlie regain his health. We continue to keep all of you and Charlie in our prayers daily.
Mari Johnson and Curt Kittelson (friends of Bill and Carol Lewis) <clkmjj@astound.net>
Sartell, MN USA - Saturday, October 05, 2002 at 11:48 PM (CDT)
Charlie,
Several of Megan's fellow 2nd grade classmates are praying for cousin Charlie. You should be getting some mail soon. Megan and Matthew want to come and play again. God Bless you, We Love You!

Tim, Julie, Megan & Matthew Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN USA - Saturday, October 05, 2002 at 09:47 PM (CDT)
Don't know if you noticed in the paper this morning that four new WHITE buffalo calves were born in North Dakota. Very good fortune. Tell Charlie that the Buffalo Strength is working for him. Much love, Lyn
Lyn Lawyer
- Saturday, October 05, 2002 at 09:43 PM (CDT)
We are praying for you.
Lucille Wallis, mother of Clark Wallis

Lucille Wallis
Lancaster, Oh usa - Saturday, October 05, 2002 at 01:55 PM (CDT)
Charlie and everyone else: I go to the computer the first thing in the morning and usually the last thing at night in case there is more news, and there usually is....your Mom and Dad are something!.....Thanks for all the updates....you certainly have lots of prayers.....I know you and your family are feeling them....God is so faithful!
Donavon and I will be gone for a few days....but we will check in with you. You have a great sleep tonight, and we'll talk soon. Love Aunt Lois and Uncle Donavon

Lois Kuehnast
Northfield, MN - Friday, October 04, 2002 at 10:05 PM (CDT)
Charlie, it was so wonderful to see you the other night. Becky and I and all of the Mangans are pleased to have had the opportunity to visit you. We think of you often throughout the day and pray for your recovery together as a family at night. Stay tough as a buffalo!!! We are all waiting anxiously for your recovery!!! Love the Mangans
Mike, Becky, Mari Lyn, Paige, Andrew and Eli Mangan <mmangan0030@aol.com>
St. Paul, MN USA - Friday, October 04, 2002 at 05:30 PM (CDT)
Dear Charlie,

I'm thinking about you all the time. My family is sending extra Preemie Power your way. I know you have plenty of your own, but more can't hurt, right?

We missed you at our Preemie-L reunion and we know you'll be at the next one. Your mom sent us a fabulous photo of you which we put on our photo board so you were sort of with us anyway.

I think your mom is as tough as you are, in case you didn't already know that. Get well!

With love,
Nancy

Nancy Redheffer <nredheffer@yahoo.com>
Glen Ellyn, IL USA - Friday, October 04, 2002 at 03:42 PM (CDT)
Charlie, Charlie,
You live in our hearts and we don't even know you. We have a bulletin board just for you filled with the updates of your progress and a picture of you. You are soooo cute! We will continue to pray! We love your grandpa and grandma, Bill and Carol and we love you, too! We are waiting for the day when you can walk in the church door at New Hope healed. Just so you know ahead of time, I will give you a big hug. Hang in there buddy! You've got the best physician in the world!

Kathy Brown <kbartohwyn@hotmail.com>
Baxter, MN USA - Friday, October 04, 2002 at 12:02 PM (CDT)
Yo Paul--thanks for the installment and sorry the U doc didn't show. I remember my surgeon appeared post op for me at 9:45 PM. Her hair was quite frazzled. Hope sats stay up. Love, Margot
Margot Mason-Jones <mmisfit@webTV.net>
PHX, AZ - Friday, October 04, 2002 at 08:56 AM (CDT)
Charlie,
It was so good to see you last night and rub your cute little butt. You looked so plump.I don't think I like the look on you, so make sure you don't follow me in that area.I know that you will make it.
Love,
Aunt Alicia

Alicia Kiehne <Alicia_Kiehne@hotmail.com>
St Paul, MN USA - Friday, October 04, 2002 at 08:17 AM (CDT)
Thanks for the detailed update, Terese. When we can't be there in person,it helps to take in all the nuances. We're ferently hoping for a resurgance from the liver remnant! Since it resisted the cancerous cells, it MUST be so tough. (That's a given, considering Charie's buffaloesque qualities). KEEP HOPE ALIVE, EVERYONE! Love, Margot and Andru
Margot Mason-Jones <mmisfitwebTV.net>
Phx, AZ USA - Thursday, October 03, 2002 at 10:13 PM (CDT)
Charlie, Paul & Therese--Been following your progress each day. Our prayers are with you and your whole family.
Monie Kiehne
Stewartville, Mn - Thursday, October 03, 2002 at 09:47 PM (CDT)
You are all amazing! If sheer strength of will could only command outcomes! You continue to be thought of daily.
Love,
Chris

Chris Engstran <engstran@aol.com>
White Bear Lake, MN - Thursday, October 03, 2002 at 02:20 PM (CDT)
Well Therese, you and I have talked many times about how sometimes it is the simplest, most low tech changes that make a big difference in outcomes! I am so glad to hear that that is the case again. Yesterday Justin and Allie talked about the fact that Charlie's and their birthdays are just around the corner and they are looking forward to cake. When all is said and done we will have to get them together for a belated celebration.

I am sending you a big hug and all my best wishes today. We love you all and are full of faith, hope and prayers for everyone.

Chris, Jim, Justin and Allison <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Thursday, October 03, 2002 at 08:45 AM (CDT)
Charlie & Family: I am a friend of Alicia's, and every time I see her, it has not been "Hi", but rather, "How is Charlie?" I have been very grateful to be kept up to speed with the progress, as well as the knowledge of the hurdles that still need to be jumped....keep up the strength to get over those hurdles, they will get shorter as time goes by! Continue to be strong little guy! Liam & Jack: You have a brave little guy for a brother -- just wait, once he is back to playing -- LOOK OUT! God Bless! You are all in my prayers!
Natalka Hertaus <simplynatalka@aol.com>
Lino Lakes, MN - Thursday, October 03, 2002 at 07:48 AM (CDT)
Charlie!! We have been praying for you in Georgia little man!! You are a household name here and just know that my 2 preemies have really been praying their little hearts out. We know you can pull through this...you've come so far! God is on our side dear...hang in there. Love, Preemie L'r -Suzanne T.
Suzanne Thongbai <Mtncabin01@wmconnect.com>
Sylvester, Ga USA - Thursday, October 03, 2002 at 03:43 AM (CDT)
Charlie,
We are so thankful that flipping to your belly side has been a positive thing. We pray for your doctors and the entire medical team working to bring you the very best care possible. We love you!

Tim & Julie Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN USA - Wednesday, October 02, 2002 at 10:15 PM (CDT)
Charlie, I can hardly wait to get online to see what improvement and the latest report you have made.,Have a happy birthday on the the tenth I bet you can get any present you want from gramdma and grandpa Lewis. Keep up the good work Our prayers are with you
Marianne and Gene Herold <mherold@lakes.com>
West Concord, Mn - Wednesday, October 02, 2002 at 06:15 PM (CDT)
Hi again Charlie and family,

I'm glad to hear the improvements you are making Charlie. You know several (actually quite a lot) years ago they did a study in the unit about putting babies on their tummies and O2 levels. And it showed that they were able to utilize the O2 better and have higher sats with less O2. They felt it went back to when we used our arms as legs and that our bodies were built to be suspended from our backbone in the most simplistic sense. Of course we nurses had discovered that babies did better on their tummies way before they did their studies. Don't quite know what they are saying now though since the "put your baby on his back" program has started. My observation still holds that they do better on their tummies if they are in O2. I am glad it is working for you, Charlie. Will still keep you in my prayers. Kay Konkel

Kay Konkel
St. Paul, MN - Wednesday, October 02, 2002 at 03:12 PM (CDT)
Keep fighting Charlie!!! we are happy your surgery is over, now our big job is to pray that your liver "kicks in".
We continue to pray for you and your whole family. Love and prayers from Grace Lutheran Prayer Ministery Group, Austin MN.

Velma Vick <vevgrm@smig.net>
Austin, MN United States - Wednesday, October 02, 2002 at 01:48 PM (CDT)
Hi Charlie and your mom, dad, and brothers,

It sounds like you are doing well now, after your surgery. Keep up that fighting spirit. I hope you feel better each day, and can soon go home. I think of you often.

Susan Scherer (your old teacher at Rondo)

Susan Scherer, Rondo ECSE
- Wednesday, October 02, 2002 at 12:28 PM (CDT)
Lord Jesus,

We commit the healing of Charlie's body to you. Lord make the liver work, you are our physician. Make that liver grow into a new whole complete healthy liver. Thank you Lord for increasing the O2 Sats. Lord we speak to his lungs in your name and command complete restoration. Father healing this body is easy work for you, we ask that the answer to our prayers be delivered NOW. Thank you for getting Charlie and his family through the last week. We honor and golorify you Lord. Astound the doctors, so they see that the only reason for Charlie's recovery is you Lord.

Thank you Father

Jessica Rogers (Prayer Team American Express) <jessie_roger7@hotmail.com>
Eagan, MN 55121 - Wednesday, October 02, 2002 at 09:13 AM (CDT)
I will be praying for dear Charlie that he will be healed. All is possible in prayer in Jesus name, and there is much hope. God bless you. Love & prayers, Janet

Janet Glaubitz
Edmonton, Alberta, Canada - Tuesday, October 01, 2002 at 10:33 PM (CDT)
Oh, Charlie, it was hard to work today--you were on my mind and heart most of the day. So many people asked about you and told me they were praying for you. We rejoice with the small victories and pray about the problems. Wish I could have been there to see you wiggle your toes--only hope your Daddy and Mommy can see the wonderful sight. There is more than one person wishing to give you a hunk of liver. We will just pray for your liver, bowel and lungs tonight in particular and the rest of you in general. Love, Opa and Oma
Opa and Oma <rckiehne@smig.net>
USA - Tuesday, October 01, 2002 at 09:24 PM (CDT)
Charlie and family, My husband and I are thinking of you often. What a burden you have to carry, but with GODs help you are doing it. Take care of your other boys too. Bless you, You will all be in our prayers.
Jan Andree <jdandree@hotmail.com>
Brownsdale, MN USA - Tuesday, October 01, 2002 at 09:13 PM (CDT)
As I've said before, my liver and I stand ready and willing to help Charlie out, if needed. Of course, we hope it doesn't come to that! I'm thrilled to hear the good news about the head CT. We'll hope with you that tomorrow brings better news!

Robyn Hennen <RJHennen@msn.com>
Cold Spring, MN - Tuesday, October 01, 2002 at 07:15 PM (CDT)
Dear Charlie and family,
Although we don't know you except throught your Uncle Tim and Aunt Julie, our kids are friends with your cousin's Megan and Matthew. Our thoughs and prayers are with you as you continue to recover. Keep on fighting as God's angels are watching over you.

Tom, Sue, Mike and Eric Holst <holsts@acegroup.cc>
Lanesboro, mn 55949 - Tuesday, October 01, 2002 at 03:28 PM (CDT)
Just wanted to let you know that I am thinking of you today as Charlie has his ride through the big round donut. Therese - my cold is almost gone. As soon as it is I will let you know and if you still are wanting a visitor I will be there. In the mean time, I am praying for you and thinking of you and trying my best to telepathically send my support.
Chris <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Tuesday, October 01, 2002 at 08:23 AM (CDT)
Charlie isn't the only one who is as "tough as a buffalo"! Your whole family is resembling an entire herd of tough buffalo!! Your strength is incredible! You continue to be in our thoughts. One small step at a time and you will all get through this!!
John, Kim, McKenna, Rachel and Allie Dennstedt
Burnsville, MN - Monday, September 30, 2002 at 09:49 PM (CDT)
Hi, I am mainly a lurker on the preemie-L, but finally decided it was time to tell that for the past several months and definitely the past few days, i have been praying as hard as I can for Charlie and for your family. You are all truly a source if inpiration and strength. Keep going, keep fighting Charlie!
stella bialous
San Francisco, CA USA - Monday, September 30, 2002 at 06:09 PM (CDT)
It has been a privilege to lift y'all up in prayer. Westwood's Urgent Prayer Team and Ministry Staff have been praying for God's intervention in not only Charlie's life, but also in his relatives' lives. Frequently, my thoughts are of you and I'm prompted to pray for healing and for strength in the meantime. Keep on letting us know when special prayers are needed.
Pastor Steve Schoepf, Westwood Community Church
St. Cloud, MN - Monday, September 30, 2002 at 12:27 PM (CDT)
Dear Charlie,
We are thinking about you and praying for you everyday. I ask my mom to read to me everyday what is in your journal. We were happy to hear that you are doing a little better today. My Papa taught some classes for your Grandpa Bill last week so he could come and see you. I hope he can do it for him again soon so your Grandpa can be there with you.
We pray for you everyday!! Stay strong.
Brody, Brock and Benjamin Dronen

Brody, Brock and Benjamin Dronen <krissy_e4@hotmail.com>
Alexandria, MN USA - Monday, September 30, 2002 at 12:22 PM (CDT)
To all of you we send our love and admiration for you faith and devotion. I did not have e-mail last week so have spent time this AM reading everything. It was wonderful to see Liam at St. Matthew's with Grandpa Lewis yesterday.
Love and prayers, Joan Hershbell & Gary Johnson

Joan Hershbell <jhershbe@visi.com>
St. Paul, MN USA - Monday, September 30, 2002 at 08:12 AM (CDT)
Charlie,
The family and friends gathered for Megan's 8th Birthday lifted a special prayer for you. We love you very, very much and pray that this upward swing will continue.

Tim and Julie Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN USA - Sunday, September 29, 2002 at 10:14 PM (CDT)
Charlie, you have rounded another corner and we pray this road is long without any more corners. It was so difficult seeing you go into surgery last night--heaven was bombarded. When we saw the smiles of the surgical staff wheeling you down the hall afterwards we knew the Lord had again blessed you (and us). There were little problems again today, but the medical team was there constantly taking care of you. It was so hard to leave you tonight--we would rather just stay so can be near by. Liam was visiting Alicia this afternoon. They were watching a movie and eating popcorn. It will be so good to hear you laughing with them watching movies again. Jack sure loves his Cheerios. You will enjoy giving them to him. We pray for you, Charlie, your medical team, Daddy and Mommy, Liam and Jack. We are so thankful for your Grandma Carol to stay with your brothers and to keep things status que at home. We are so thankful to everyone who are remembering you in prayer--"Whatever you ask in My name, I will answer." We know prayer works, Charlie, and you are continually being uplifted. We will be up soon to see you. Love Opa and Oma
Opa and Oma Kiehne <rckiehne@smig.net>
Austin, USA - Sunday, September 29, 2002 at 10:12 PM (CDT)
It is so good to read your encouraging news after such a tense time of waiting and wondering last night. We pray for all the best for all of you.
Larry Nerison <lnerison@smig.net>
Adams, MN Mower - Sunday, September 29, 2002 at 07:52 PM (CDT)
Bernie and I met Charlie's Aunt Heather on a camping/horseback riding trip through the Canadian Rockies and heard a little of Charlie's condition. However, it was only in reading the journal that the full impact of what Charlie is going through hit home. He's an incredibly courageous boy as is the rest of his family! Stay strong in God...there are at least 2 Torontonians rooting for you! You're all in our thoughts and prayers.
Jenny and Bernie Chan <jennifer.chan@rotman.utoronto.ca>
Toronto, ON Canada - Sunday, September 29, 2002 at 07:40 PM (CDT)
Have been following Charlies times in his life since I am friends with grandma Annette..I hope this finds him improving more and more each day! He is in my prayers as well as the family..
Becky Gorman
Cannon Falls (formally of Austin), Mn USA - Sunday, September 29, 2002 at 07:27 PM (CDT)
Dear Carol & Bill -- Mom and I are following Charlie's progress and praying like crazy for him. He's a tough little guy and no doubt God has a special mission for him so he'll be around for a long time. Call me if you feel like talking. Love to everyone!
Reggie & Eloise Lundin <rlundin2@earthlink.net>
Burbank, CA USA - Sunday, September 29, 2002 at 06:59 PM (CDT)
We are in the cabin next to Carol and Bill and Liam played with our grandchildren.We just got back from there and I turned the internet on and saw the latest news. You know we always say on OB that special children are given to special parents and I think you all are that. It doesn't seem fair at times but keep up the faith and keep believing. Bill if you need anything done with your cabin or need help just let us know we will be up there.We will see all!! of you next year at the cabin Marianne and Gene Herold
Marianne and Gene Herold <mherold@lakes.com>
West Concord, Mn Dodge - Sunday, September 29, 2002 at 06:36 PM (CDT)
What wonderful writers you are! I am a nurse who has not worked (in a medical setting) since our children were born, but I have been following Charlie's journal since the prayer request came from Bill and Carol. You are describing his conditions so knowledgeably and my heart is aching and praying with yours! I certainly don't know why God sends some of these things in our lives---I just know we are supposed to trust Him. Barry and I will just continue to lift Charlie, his medical team, and his wonderful family up every day in prayer. God be with you!!!

Love, Sandy Ross <btross3@charter.net>
St. Cloud, MN - Sunday, September 29, 2002 at 06:16 PM (CDT)
We continue to pray for Charlie and the whole family over here. We are thinking of you and sending our very best wishes. Hopefully this second surgery will provide the turn around point and Charlie will continue to improve. We care about you so much and offer our strongest support. We are praying for Liam and Jack as well that they have patience and peace while their brother recovers!
Chris, Jim, Allison and Justin
Apple Valley, MN USA - Sunday, September 29, 2002 at 01:20 PM (CDT)
I hope it is alright that I forwarded your letter to others who believe in the power of prayer. We will all keep you and Charlie in our thoughts and prayers from this moment on. You are doing an amazing job of hanging in there, for Charlie and for your other boys. We hope there is a little comfort in knowing that strangers are out there pulling for you! People do really care! Stay strong, Jan Pavloski, Parents-for-Parents
Jan Pavloski <pavloskij@ellsworth.k12.wi.us>
Maiden Rock, WI US - Sunday, September 29, 2002 at 12:39 PM (CDT)
Good luck to Charlie. Teresa & Paul, Bill & Carol, This is certainly more than one family should have to bear. We are thinking about you. Peter & Mary
Peter Ruth <pruth@cloudnet.com>
- Sunday, September 29, 2002 at 12:38 PM (CDT)
I just found out that I'm related to Charlie very distantly. His grandmother, Carol, and my grandmother Jeanine are cousins. My mom told me about the website, and I immediately went to it and started reading. I have two sons myself, ages 5 and 7, and Charlie's stamina has really made me count my blessings. Him and all of the family will be in our prayers and the prayers of my church! GET WELL, CHARLIE...GOD IS WITH YOU!
Rachel Johnson-Oliver <rachel@blackhat.org>
Aiken, SC 29803 - Sunday, September 29, 2002 at 11:55 AM (CDT)
We woke up early this Sunday with Charlie on our minds. Please know we're thinking of and praying for the Kiehne clan. Big hugs to all --

Cathy, Scott and Thomas <scocat@hopkinsville.net>
Hopkinsville, KY 42240 - Sunday, September 29, 2002 at 06:50 AM (CDT)
Our prayers are with you and your whole family. Keep fighting. You are such a miracle. :)
Karley & Madysen <ckGrandy@charter.net>
Klamath Falls, OR United States - Sunday, September 29, 2002 at 02:23 AM (CDT)
Charlie,
I have never prayed so hard in my life tonite as I did driving to the hospital. There were so many tears of joy in the waiting room, with just the knowledge that you made it and that things were looking so much better.
I hope that this is the turning point and that you will be out before the first snow flies.
Love, Aunt Alicia

Alicia Kiehne <Alicia_Kiehne@hotmail.com>
St Paul, MN USA - Saturday, September 28, 2002 at 11:25 PM (CDT)
We're with you in spirit tonight as you await the results of Charlie's latest surgery. I feel as strongly as you do that Charlie's story doesn't end here. I've been thinking so much about Charlie the last few days and reminiscing about his (too) early days in the NICU. I'll never forget the first time that I saw his little pink body in that isolette that seemed ridiculously too big for him. We all braced ourselves for him to slip away, but instead he hung in there and persevered against what seemed like impossible odds. From the beginning, Charlie has shown us that he possesses some kind of secret ingredient that propels him out into the world with an enthusiasm and joy that make him unstoppable. I'm counting on this trait to pull him through this ordeal.

After several rounds of extra special prayers for Charlie, Max asked if Charlie was getting better. I told him that there were many doctors and nurses working with Charlie to make him get well so that he could come over to play again. "But it's taking too long," was Max's reply. I couldn't agree more! I'm praying that six months from now, this will be a very distant memory and that Charlie will be busily planning trips to Grandpa's lake to drive the pontoon and pick up acorns.

Robyn, Rick, Max, and Oliver Hennen <RJHennen@msn.com>
Cold Spring, MN - Saturday, September 28, 2002 at 10:20 PM (CDT)
Go Charlie! Keep stong! God has His angels watching over you! He has provided such a loving family and team of caregivers for you. I think you are an inspiration to all of us. God never sends us anything that we can't handle with Him at our side. He has tremendous plans for you Charlie. God bless you real good. You and your family are in our prayers. With Hugs, The Hazels
Brian and Judy Hazel
Lanesboro, MN USA - Saturday, September 28, 2002 at 02:54 PM (CDT)
Hi to the Kiehne 5: I'm sorry that I haven't written for quite some time, but I have been viewing the website daily. I bet heaven is just a buzzing with all the prayers that are coming their way. I know God is smiling down and is happy that this special guy of yours has brought so may caring souls together to pray for his recovery. It is so visible to see that God has given you the strength and endurance that you all need at this time, so you can conquer each new hurtle. We had a wonderful surprise when we went and did chores this morning. We had 5 new baby ducks at this time of the year. They sure make you smile. You'll have to tell Charlie about them when he's up and ready. Maybe we can email a picture to you. I saw his picture with the tomato plants. I have one inside and it sure could use some prayers if he feels like praying for mine when he feels better. Take care!! You are all in our thoughts and prayers daily. Love the Koob's
Rick, Renee, Kaycee & Ryan Koob <kkranch@goldfieldaccess.net>
Humboldt, IA USA - Saturday, September 28, 2002 at 01:25 PM (CDT)
Our thoughts and prayers are with you, little guy. May precious angels minister to your every need that you may have May God hold your hand each and every moment that you are involved with this struggle, and May God Bless You.
David schmidt
st. ansgar , ia usa - Saturday, September 28, 2002 at 12:34 AM (CDT)
praying on. Good thing Heaven's switchboard doesn't get jammed and give out a busy signal, huh?
Love Jay and Lyn H.

Lyn Hedlund
Avon, Mn - Friday, September 27, 2002 at 05:31 PM (CDT)
Charlie and family ... you are in our thoughts and prayers, now more than ever! Through many visits to this site and updates from Bill and Carol, we have been amazed and inspired by God's work in your family. We have admired the endurance, patience and faithfulness He has provided you. Thank you for sharing with us! Go Charlie! Go God!
Kate & Josh Austad <theaustads@hotmail.com>
Cold Spring, MN - Friday, September 27, 2002 at 02:52 PM (CDT)
We have been praying for you in our prayer group faithfully. God is faithful.
Jan Ingersoll <ingie@smig.net>
Austin, MN USA - Friday, September 27, 2002 at 08:20 AM (CDT)
Hugs and prayers for all of you, especially Charlie. Hang in there kiddo. You've got a lot of people pulling for you and sending their best thoughts and prayers for you.
Vashti, Josh & Zach (preemie-l'rs)

Vashti Eppler <cveppler@easystreet.com>
Yamhill, OR USA - Friday, September 27, 2002 at 12:49 AM (CDT)
Whew. We're reading each of Terese's installments with great care for Charlie! We cannot begin to imagine the complexities. With fervent hopes for a break--for higher numbers oxygen-wise and low white counts, love Maroo
margot mason-jones <mmisfit@webTV.net>
PHX, AZ USA - Thursday, September 26, 2002 at 09:44 PM (CDT)
It was so good to finally see you today. I'll be back to visit you soon.
Love, Auntie Heather
- Thursday, September 26, 2002 at 09:20 PM (CDT)
Our thoughts and prayers are with your family, especially Charlie. Was checking the website for my mom (Jeanine Kivi)as she received a note from Carol. Hope all goes well for all of you.
Nancy (Kivi) Johnson <njohnson54@cox.net>
Wichita, KS USA - Thursday, September 26, 2002 at 07:57 PM (CDT)
Thinking about all of you.
Many hugs, Sharon

Sharon Stern <sstern@facstaff.wisc.edu>
Madison, WI USA - Thursday, September 26, 2002 at 05:01 PM (CDT)
Charlie, many thoughts and prayers continue for you from the staff at St. Mark's. May God's healing light shine upon you and provide comfort and rest to you and your family.
Sara Hayden <sarahayden@charter.net>
Austin, MN USA - Thursday, September 26, 2002 at 03:02 PM (CDT)
So many thoughts and prayers! Hoping and wishing the best for you Charlie!
Terese, let me know if I can be of any help to you and your family.
Love,
Chris

Chris Engstran
White Bear Lake, MN 55110 - Thursday, September 26, 2002 at 11:34 AM (CDT)
Charlie, I'm so glad to hear that your surgeon was able to get rid of that icky tumor. I know the next couple of weeks are going to be pretty awful, but you'll once again prove how tough you are by pulling through and charming the socks off your nurses! There are so many people whispering your name to heaven and holding your family in their hearts. You are such a loved little boy.

When I was reading your mom's post about your spirit visiting somewhere else while your body was being fixed, baby Oliver started laughing like crazy! I think maybe you were here for a short visit and gave his toes a little tickle! Wouldn't that be funny!

Stay strong, Charlie. You have so many great things to look forward to.

Love,
Robyn, Rick, Max, and Oliver

Robyn, Rick, Max, and Oliver Hennen <RJHennen@msn.com>
Cold Spring, MN - Wednesday, September 25, 2002 at 08:05 PM (CDT)
Charlie, Paul, Terese, Liam, and Jack-
Sending all of our best from Miami, Florida.
Hugs to all,

Dena, Harry and Allison Riddle <denariddle@hotmail.com>
Miami, FL USA - Wednesday, September 25, 2002 at 04:08 PM (CDT)
Hi Terese, Paul, Charlie, Jack and Liam,

I have been keeping up with you on the board. Just want you to know that you are in my prayers and that I have asked our prayer chain at North Como Presbyterian to include Charlie. If there is anything I can do for you let me know. Charlie is one tough little fighter as we know from the past. God be with you.

Kay Konkel <dkonkel4725@attbi.com>
- Wednesday, September 25, 2002 at 02:06 PM (CDT)
I am part of the prayer team at American Express and received a request to pray for Charlie and received an update on the surgery today. I am so emotionally overwhelmed and think your family has to be so amazing to even make it this far.

On Nov. 1st last year my husband was involved in a head-on collision with a school bus on his way to work. Looking at our van he should have been killed. All the best of the best surgeons at HCMC say they don't know how he made it. THE LORD JESUS brought my husband through and saved his life that we may declare the glory of the Lord. The Lord was there for us in the midnight hour when the lung pressure readings were so critical and his heart rate was over 180. We pleaded and frankly demanded that God honor his Word and heal Omar's body. My husband was in SICU for 11 days intubated and in the hospital for 6 weeks, he suffered from two infections and a third infection that went directly into his heart (central line got infected). He spent another 7 weeks in a nursing home because his pelvis was broken plus his femur and arm were broken as well. It is so hard to relive those feelings.

I am sitting here weeping. I will pray and plead with God. I have learned to rely on him for so much and my faith has increased dramatically, I'm sure you can say the same.

Lord Jesus,

I lift Charlie up to you. Lord he is just a child! Save his body and his life. Work your miraculous works in his body. Astound the doctors Lord. Let the doctors see your supernatural healing over Charlie's body. Lord restore his liver, give him a new one. (We prayed for a little girl that did not have a spleen and Boom! she now has one!) Lord you are the healer you are our physician, we thank you for the doctors. They have done what they can do, now do Your work Lord. Heal the incisions in triple time. RESTORE Charlie's hearing right now in the name of JESUS.

Lord we thank you for Charlie and his family. We pray a special pray over his parents and siblings. Give them amazing strength to get through this time. In six months Lord this should be a distant memory. Father we command Charlie's body to be completly healed right now in the name of Jesus! Thank you Lord for honoring our prayer.

I better sign off, I need to pray right now and weeping and shouting is in order. Thank you for giving me the opportunity to pray for your son. In Christ's love, Jessica Rogers

Jessica Rogers <jessie_rogers7@hotmail.com>
Eagan, MN US - Wednesday, September 25, 2002 at 11:43 AM (CDT)
Well done Charlie, we are praying for you and your family,
stay strong Charlie our thoughts are with you.

Helen , Jeff and James Linn
Perth , WA Australia - Wednesday, September 25, 2002 at 10:51 AM (CDT)
Yea Charlie!!!! I am soooo glad the tumor is out! Woo-hoo! You guys are all strong beyond words. We will be praying for you constantly for the next several days as Charlie recovers.
Chris, Jim, Allison and Justin <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Wednesday, September 25, 2002 at 10:06 AM (CDT)
Charlie, hang in there! Well done on coming through your surgery - now stay strong and heal well!
Lots of love,

Eleanor.
New Zealand. - Tuesday, September 24, 2002 at 10:58 PM (CDT)
Charlie, as we pray for you, we'll also remember to pray for your tomatoes till you're able to pray for them again.
big hugs all around.


jay and lyn hedlund
avon, mn stearns - Tuesday, September 24, 2002 at 09:39 PM (CDT)
We are SO relieved to hear that Charlie has endured his surgery--which was clearly unbelievably intricate and arduous. Bravo to the medical team. We are thinking of you all the time. I awoke early this AM with Charlie on my mind. Love, Margot (and Andrew)
Margot and Andrew Mason-Jones <mmisfit@webTV.net>
PHX, AZ USA - Tuesday, September 24, 2002 at 09:08 PM (CDT)
Attaboy Charlie! You just keep healing and recovering and growing!
Love to you and your family

Lea & Ernst <leharth@shaw.ca>
Vancouver, BC Canada - Tuesday, September 24, 2002 at 07:21 PM (CDT)
We are friends of Bill and Carol's. We met through church. For the past two years we have heard about Charlie. They are very proud grandparents! He is such a delight to hear about! Charlie we are praying for you and your family. You have given so many people inspiration and hope.
Mark and Tammy Lindell
Sartell, MN - Tuesday, September 24, 2002 at 06:45 PM (CDT)
Great News from Grandma today! We praise God that the surgery went well. We prayed for you, Charlie, in our Tue morn Bible class and our church prayer chain is a buzz with requests for a miracle of healing. (to mom/dad) I could identify with this possible negative chemo effect on Charlie. When we learned that Joshua will live with no thyroid, possible sterilization and slow learning, we then realized that at first we prayed for 'just let him live, Lord' and now we were getting picky as to the quality of that life that we prayed for. All things in due time. The Lord gives grace and strength in our weaknesses.
Pastor and Connie Natzke <wjnatze@smig.net>
Austin, MN U.S. A. - Tuesday, September 24, 2002 at 06:06 PM (CDT)
Just a note to let you know that we're thinking of you and your family, and to offer our prayers for Charlie also! I'll let my mom (Jeanine Kivi) know what the update is.

Mary (Kivi) Seaberg <hannah_banana56@hotmail.com>
Detroit Lakes, MN USA - Tuesday, September 24, 2002 at 05:28 PM (CDT)
I work with Bill at ATC and share an office. The world is small because I also was involved in an MBA project with Daria H. from Aveda and I think Paul was one of the employees we interviewed. Please know that all of you are in my thoughts and prayers.
Karen Meuwissen
Morris, MN USA - Tuesday, September 24, 2002 at 05:09 PM (CDT)
Just got the update from your dad... a rough day for all of you but we'll continue hoping and praying for continued success and better days ahead for Charlie and all of you. You are all brave, loving and caring folks and you deserve the best that life has. Love, Aunt Sandi & Uncle Doug in Sarasota, Florida.
Sandi & Doug Suddaby
- Tuesday, September 24, 2002 at 05:08 PM (CDT)
Saundra & I know Bill & Carol Lewis from Fayette, Iowa--and also Terese. Our hearts go out to you all and we pray God will be gracious to Charlie. God bless you all!
KEITH NASH
MITCHELL, SD USA - Tuesday, September 24, 2002 at 04:55 PM (CDT)
Dear Charlie,
You are such an amazing big boy! You will be in our thoughts today and in the days ahead. We have looked forward to each new update to see the progress you have made all summer and we pray that the future updates will be just as positive!!

Love, John, Kim, McKenna, Rachel and Allie
Burnsville, MN - Tuesday, September 24, 2002 at 08:06 AM (CDT)
Dear Charlie,Paul,Terese,Liam and Jack; Our most positive prayers and thoughts are being sent your way tonight and as surgery and recovery takes place tomorrow and in the days to come. Strength to your whole family and to the Doctors as they make their very best decisions! God be with you all!
Chuck and Marietta Dennstedt
Harmony, Mn - Tuesday, September 24, 2002 at 12:22 AM (CDT)
Dear Charlie,
Our prayers are with you tonight as you sleep resting up for tomorrow. We pray for a quick and thorough surgery and a quick and restful recovery for you. We know that you will be strong like a buffalo.
Hugs and Prayers,
Vashti, Josh & Zach
(Preemie-l members)

Vashti Eppler <cvepper@easystreet.com>
Yamhill, OR USA - Monday, September 23, 2002 at 11:16 PM (CDT)
Dear Charlie,
We are praying for you tonight as you are about to go into surgery. God surely knows the plans He has for you, even if we do not. And most of this time, we can only keep our focus on God as we lift you up to Him and pray for your recovery.
Love in Christ, Barry & Sandy Ross

Barry & Sandy Ross <btross3@charter.net>
St. Cloud, MN Stearns - Monday, September 23, 2002 at 07:03 PM (CDT)
Charlie....Alicia and I both sent notes out today asking our friends and co-workers to say a special prayer for you tomorrow and over the next few days. I know you will take the surgery in stride, just like you have done with everything else. I'm glad that you came over yesterday for apples and pickles! Everyone else seemed to prefer the cake and ice cream for some reason. . .
Love, Auntie Heather
St Paul, MN - Monday, September 23, 2002 at 06:38 PM (CDT)
Charlie, you keep up the great work! Keep that smile on your face. We are all thinking about you.
Terri Anderson <tanderson@wtres.com>
Minneapolis, MN USA - Monday, September 23, 2002 at 01:50 PM (CDT)
We are in a small group, and last evening mentioned that Charlie needs prayer...we are praying for him and for your whole family for God's peace and strength,and for wisdom for the Doctor.
Heidi and Ethan will be putting Charlie on their prayer chain as well...
We love you and are constantly in prayer for you.....Uncle Donavon and Aunt Lois

Lois Kuehnast
Northfield, MN - Monday, September 23, 2002 at 11:45 AM (CDT)
Hi Charlie! You don't know us, but we knew your parents in college. We prayed for you at our church yesterday. Ben, who turned 7 yesterday, is trying to figure out how to share some of his birthday cake with you. You are a tough little boy and we know you will get through this next stage of your journey. We're thinking of you!
Nancy Withbroe, Paul Smolinsky, Ben & Peter <withbroen@aol.com>
Washington, DC USA - Monday, September 23, 2002 at 09:22 AM (CDT)
Dear Charlie and family, Grandma shared all about your upcoming surgery this morning in Bible Class. We all prayed for you at that moment and we will continue to ask God for your complete recovery. We kind of know what Grandma and Grandpa are going through because we have a little grandson, Joshua, who is 9 now but when he was 1 1/2, he had aplastic anemia. He had a bone marrow transplant with his- then little 3 mo old brother, Luke, being the donor. After chemo and radiation he is doing well today. We enjoy going to your guestbook and reading all about your progress. We will continue to check in. Blessings to mom and dad and the rest of the family. God is good! He loves you all very much!
Pastor and Connie Natzke
Austin, MN U.S.A - Sunday, September 22, 2002 at 07:21 PM (CDT)
Charlie
We are thinking of you and praying for you over here at our house! Allie and Justin are looking forward to the day when we can share happy meals again! (Although I am still a little grossed out by the purple ketchup!)
Good luck on Tuesday.
Love, Chris, Jim, Allison and Justin

Chris Myrah <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Sunday, September 22, 2002 at 12:10 PM (CDT)
To Charlie and Family,
The Lord Jesus Christ Knows every need and He is able to meet every need. "If ye shall ask anything in my name, I will do it." John 14:14. I will ask God to perform a miracle for Charlie in Jesus' name and as God's word proclaims, He will do it! I am thanking God for hearing and answering our prayers! Thank you, Jesus, King of Kings and Lord of Lords. You, Lord are worthy of all praise. Thank you, God for what you are doing in Charlie's life.

Brother Jeff Eden <jweden@ohiohills.com>
Lancaster, OH U.S.A. - Thursday, September 19, 2002 at 09:30 PM (CDT)
We will be praying for Charlie and your family.
Sharon Holcomb <sholcomb54@yahoo.com>
Indore, WV US - Thursday, September 19, 2002 at 07:21 PM (CDT)
We will be praying for Charlie
Sharon Holcomb <sholcomb54@yahoo.com>
Indore, wv us - Thursday, September 19, 2002 at 07:18 PM (CDT)
My prayers will be with Charlie.
Derf <rderflinger@greenapple.com>
Lancaster, oh Fairfield - Thursday, September 19, 2002 at 06:34 PM (CDT)
Hi Charlie,

My prayers are with you and family in your struggle to get past this and continue to live a healthy life.
Fellow Preemie-L Member

Lorita Bridges <lmbridge@gapac.com>
Decatur, GA USA - Thursday, September 19, 2002 at 12:32 PM (CDT)
Hello Charlie (and Family)! What a blessing you have been to our lives down here in Antarctica! Our prayers go out to you, and we praise our gracious Lord for the way He has used your life to touch so many across the globe. Know that you are in our thoughts, always in our prayers, and eternally in our hearts. We love you, Charlie!
Jennifer Blum <jblum42@yahoo.com>
McMurdo Station (Ross Island), Antarctica (New Zealand) - Sunday, September 15, 2002 at 04:11 PM (CDT)
Our thoughts and prayers are with you. We pray God can give you the strength to carry on during these very trying days.
Doug & Donna Kuehnast
Willmar, mn USA - Friday, September 13, 2002 at 09:08 AM (CDT)
Hi to Charlie, Liam and the whole family,
Susan called and told me that you are jumping more hurdles. I enjoyed reading your journal and seeing those pictures of your brother Jack, who I have not met yet. My best wishes to all of you in your journey. I hope to see you soon. I think that "Olive Dance" should be in your photo album.

Karen Johnson <klj2963@netscape.net>
Woodbury, MN - Thursday, September 12, 2002 at 09:32 PM (CDT)
hi to charlie and family!

you are in our prayers here every day, and every week when we meet, we pray together, too. praise God for how so many have been touched and reminded of how precious life is. may healing come to you, charlie. thank you for sharing your life with us! :)

deb & glenn
McMurdo Station, Ross Island, New Zealand, (nearest to Antarctica) - Thursday, September 12, 2002 at 07:20 PM (CDT)
Greetings to each of you--Paul, Terese, Liam, Charlie, and Jack. It has been so good to see all of you at various times in the past month. Charlie, you will be an active partipant for the Kiehne pilgrimage to the Minnesota Great Get Together next year. Liam, how nice it was to see you two weeks in a row--what a pleasure. Jack, it's always nice to hold a baby--to love, kiss, make make funny noises too and watch. You are such a happy little guy. Terese, I'm glad you were able to enjoy your time alone. Paul, thanks for coming--we enjoyed your visit very much. All of you continue to be in our prayers. The Lord has given you many blessings and will continue. We praise Him for this. Love you much, Opa and Oma
Opa and Oma Kiehne <rckiehne@smig.net>
the best--USA - Tuesday, September 10, 2002 at 11:24 PM (CDT)
Love and prayers to you all! Reading your story is all too familiar as we lived this life last year with our daughter Clare. She was diagnosed in January of 2001 at the age of 4 1/2, had chemo, all that you have mentioned until August and liver transplant August 29th of 2001. She is just one year out from that and thriving.

I could write volumes, but if you are like me, each persons story is their own and what happens to one doesn't necessarily apply to another and may or may not help your situation. It's also late and I can't think, but I must share this, Clare would only allow a manual blood pressure cuff. And difficult parents, I think the nurses would have chipped in and bought our t-shirts you alluded to earlier. You are his only advocate, they'll get over it and end up being lifetime friends. Those automatic blood pressure machines squeeze their little arms too much. We found the manual ones more accurate and far less painful. Best of luck to you, you are in our prayers here in Charlotte, NC.

Catherine Washington <tomcatwash@aol.com>
Charlotte, NC USA - Monday, September 09, 2002 at 10:16 PM (CDT)
Sept 6- Glad to hear that charlie's doing well. One of Jay's first words was COMO. Liam is now a scholar! Saw the photo of Jack and he's a doll, Praise the Lord!
God bless. Lyn Hedlund

lyn hedlund
avon, mn - Friday, September 06, 2002 at 10:42 AM (CDT)
Glad Charlie is doing so well and that he has had some fun times this summer too. Please keep me posted on possible surgery dates? Happy back to school for Liam, God Bless You all. Prayers are constant.
Lyn Lawyer
Arden Hills, MN - Friday, September 06, 2002 at 08:27 AM (CDT)
Glad Charlie is doing so well and that he has had some fun times this summer too. Please keep me posted on possible surgery dates? Happy back to school for Liam, God Bless You all. Prayers are constant.
Lyn Lawyer
Arden Hills, MN - Friday, September 06, 2002 at 08:27 AM (CDT)
Good luck on this last round, Charlie. We're rooting for you all the way, way over here in Phoenix. Yes, it's 105 degrees still, dipping into the cool 80s at night. We're thinking of you all the time and hope any malaise this week is short lived...
Terese, thanks SO much for the email--I printed it off that day and reviewed it with Joshua's Mom. The guacamole didn't go over well (but might later) but the Slim Fast idea was intriguing.
Hey, do you guys have a scanner? If so, have Charlie doodle some on his page! We'd love to see some of his artwork. Liam's Christmas card's on the fridge.
Love, Margot and Roo
PS wedding pictures will be ordered soon and mailed thereafter things have been 80+ caseload busy @ work...

Margot Mason-Jones <mmisfit@webTV.net>
Phx, AZ - Wednesday, September 04, 2002 at 11:36 PM (CDT)
Hi Charlie, Terese, Paul, Liam, and Jack,

Ginny told me about your fight with cancer. I bet you are winning. I was your teacher in the night program at Rondo, and I remember how much you and Liam loved to read books. I am hoping you will sail through your upcoming surgery, and soon be back to feeling good, and playing all day long.

Susan Scherer, Rondo ECSE
St. Paul, MN - Wednesday, September 04, 2002 at 09:00 AM (CDT)
God is so good!!! glad to know that Charlie is doing better!!! Your kiddo's are just darling!!
Cindy Kendall <july141971@yahoo.com>
Hastings, MN USA - Tuesday, September 03, 2002 at 10:55 AM (CDT)
It is wonderful to see how well Charlie and all of you are doing. I won't be checking in again until September 23 when we return from a Celtic Pilgrimage in Wales. You will,however, be in our prayers as we walk the steps of ancient saints.
Love, Joan

Joan Hershbell <jhershbe@visi.com>
St. Paul, MN USA - Tuesday, September 03, 2002 at 08:00 AM (CDT)
Wow! What an inspiring post on August 21. We have often marveled at how the two of you have managed to deal with the many difficult circumstances you have encountered. You are a great team, and an example of what partnership in a marriage should be. You should be an inspiration to others who face difficult times. When the time is right, count on us for a couple of airline tickets and the use of a beachfront condo in Florida...and a place to park the boys. You might want to consider a time other than your 10th, because it's awfully hot there in August...the ocean is always cool though!
So glad Charlie had a relatively easy round, and hope the next is as well. Soon this will only be a memory. All our love,

Carol and Bill Lewis <blewis65@aol.com>
- Thursday, August 29, 2002 at 09:54 AM (CDT)
What fun to see the pictures of all three boys, Looking good. Glad you got your State Fair time in, very important for children growing up in Minnesota. You are in our prayers constantly and can't wait to see you in person. Please keep us posted on the surgery dates etc. God Bless You.
Lyn Lawyer (for the St. Matthew's gang) <lynlaw@attbi.com>
Arden Hills, MN - Thursday, August 29, 2002 at 06:56 AM (CDT)
Congrats!! Jack!!

My sister had a little boy on June 14th. He was a preemie. He was 8 weeks early and weighed 2lbs 5.1 ozs. His last appt He was up to 7 lbs 3ozs. I am glad to hear you are doing GREAT!!

Cathy Wiggins <JCDWiggins97@msn.com>
Saginaw, TX - Wednesday, August 28, 2002 at 09:43 AM (CDT)
Happy Anniversary Therese and Paul. Enjoyed the pictures. Charlie's eating! An answer to prayer. Lyn wants to know if you could sneak a picture of Jack in the scrapbook. She hasn't seem him yet.
jay and lyn hedlund <lynhedlund@myexcel.com>
avon, mn usa - Monday, August 26, 2002 at 06:58 PM (CDT)
Happy Anniversary! You are great people and great parents.
We are remembering Charlie in our prayers!

Bruce Nerland family
- Monday, August 26, 2002 at 11:27 AM (CDT)
Hello. I had a good time with you. I want you to come over to play today. Can you come over right now and play? We can play with my helicopter. Hello to Jack and Liam. Jack is sorta big but I'm bigger than Jack. There's a fly in here that's bizzing around. See you next time!
MAX <RJHennen@msn.com>
Cold Spring, MN - Sunday, August 18, 2002 at 07:50 PM (CDT)
Hey Charlie! I wanted you to know that your 3Ds have helped out another little guy! I'm a speech therapist over here in Phx and went to see Joshua at his house on Saturday. Sat him on my lap and offered him a cup of 3Ds. He gobbled them up happily, given their perfect morsel size. Do you have any other recommendations for high fat tidbits? Joshua's a preemie twin born 26 week gestation with CP. Can walk (has coordintion, balance/vision integration issues) feeds self. Not gaining weight. Dr. concerned and seeing monthly. Hypo and hypersensitive, stuffing bananas but gagging on the tiniest addition of crushed nuts. (Graham cracker powder and chocolate sauce go down well though). He loves grapes, hot dogs (all minced well for safety). He's squirrely about Pediasure from a (sippi) cup. Took it fine via bottle before. Same with milk, cream. Does like yoghurt, but all of it seems unhelpfully low fat. Since you (and perhaps your folks) are well versed, thought I'd send out a line!
But above all, keep your sturdy boat going, full sails ahead! Love, Aunty Margot

Margot and Andru Mason-Jones <mmisfit@webTV.net>
Phoenix, AZ USA - Sunday, August 18, 2002 at 11:09 AM (CDT)
We're so glad you were able to go to the lake for vacation Terese, Liam, Charlie, and Jack. Hope you enjoy the boat ride with your Grandpa. Sounds like a great excursion. We will see you again soon. Love, Opa and Oma

Opa and Oma <rckiehne@smig.net>
USA - Thursday, August 15, 2002 at 09:40 PM (CDT)
Glad you are at the lake Charlie, I know that you have been looking forward to being there.
Paul-I am not home tonite, so since you don't have the boys Warcraft III is all for you.

Aunt Alicia <alicia_kiehne@hotmail.com>
St Paul, MN USA - Thursday, August 15, 2002 at 03:34 PM (CDT)
Hi, this is our first day of internet use and we're visiting your web site, Charlie. Please know we're praying for you and your mom, dad, and brothers. Much love too!

Jay and Lyn Hedlund

Jay Hedlund <jayhedlund@myexcel.com>
Avon, MN U.S. - Thursday, August 15, 2002 at 12:44 PM (CDT)
SUPERB WORK, Mr. Charlie! I am so proud of your ravenous eating!:) As an SLP, I'm even more impressed by your declaration to Liam that you'd prefer Calvin's house next time. I'm working with 2 preemie twins now--Joshua is turning 3 in February. He struggles to say more than "nana" but we're working hard! Where do you find 3Ds? I want to try them with him They weren't in the chip section of the store....
Liam, you are such the big bro. Keep up the good work! Love, Aunt Margot and Uncle Roo

Margot Mason-Jones <mmisfit@webTV.net>
Phoenix, AZ USA - Thursday, August 15, 2002 at 10:09 AM (CDT)
Charlie... I can't even believe it, spaghetti, pizza, 3D's, corn on the cob AND an onion ring! I almost fell off my chair!!! I'm so happy that you are trying so many nummy new foods and that your mouth and tummy like them! I can't wait until we can have lunch together, I'll bring all the 3D Doritos, Funyons, and hot and spicy cheezits you can eat! Maybe I'll even bring you some of my favorite snack to try, homemade Chex Mix with lots and lots of butter, it's soooooo nummy and I'll make it extra spicy for you! I'm glad to hear your tumor is getting smaller and that you're feeling so much better. (You just keep telling it to take a hike) Hang in there and keep trying new foods, I can't wait to hear about what you'll try next!!!
Love, Tricia

Tricia Armstrong <tricia.armstrong@childrenshc.org>
St. Paul, MN USA - Monday, August 12, 2002 at 10:29 PM (CDT)
Hello Charlie, I want you to come over and play. Oliver is here with me. Oliver is a nice baby. Jack and Liam should come over too. Is Liam at school? I have a wrecker and a white car. I have my deck painted so we can play outside. You should bring your toys over to play with. Are you feeling better? Jack is nice to look at.
MAX <RJHennen>
Cold Spring, MN - Monday, August 12, 2002 at 03:30 PM (CDT)
Hi Charlie! I'm so glad to hear that you had a good weekend! Wasn't it nice to play outside? Max has been wondering how you are feeling and would like to see you. We may try to get down there this week if you're feeling up to it. I'm praying that this round of chemo will be even better than the last!
Rick, Robyn, Max and Oliver Hennen <RJHennen@msn.com>
Cold Spring, MN - Monday, August 12, 2002 at 03:21 PM (CDT)
Hi All,
I'm glad to hear everything is going well for Charlie.I think of you often in my prayers.We miss all our
friends in Minnesota and look forward to the day we retire and move back.Tell Charlie to keep up the good work on the 3D's.Take care.

Alan and Elaine Stern
Oconomowoc, WI USA - Monday, August 12, 2002 at 11:58 AM (CDT)
Hi Charlie!
Spaghetti and corn on the cob are Joshua's two most favorite foods too! So glad you are enjoying those and having a great weekend! Take care,
Vashti, Joshua & Zachary

Vashti Eppler (preemie-l) <cveppler@easystreet.com>
Yamhill, OR USA - Sunday, August 11, 2002 at 11:34 PM (CDT)
Hi Charlie!
We are glad to hear you're feeling so much better! Keep chowing down those 3-D's! I think they're definitely helping!
Take care,
Vashti, Josh & Zach

Vashti Eppler (Preemie-l) <cveppler@easystreet.com>
Yamhill, OR USA - Saturday, August 10, 2002 at 11:19 PM (CDT)
Great to hear Charlie is doing so much better!
Tom Dennstedt
- Friday, August 09, 2002 at 06:39 PM (CDT)
It has been great to see you back to your old self again these past few days!! I wish I could have stayed this morning to help you put the puzzle together, but I'm sure you figured it out. I'll see you tomorrow.
Lots of Love, Auntie Heather <hkiehne@hotmail.com>
St Paul, MN 55117 - Friday, August 09, 2002 at 09:37 AM (CDT)
Charlie! You are such and strong boy! So glad to hear that you are eating! My Haley is 6 and loves 3-D's to! She said that if you ever run out email her and she'll send you some of hers! :) Be strong and know that all us preemie L'ers are praying round the clock for you! So wonderful to hear about the shrinkage of the tumor!! One prayer answered!
Suzanne & Haley Thongbai <Mtncabin01@wmconnect.com>
Sylvester, Ga USA - Thursday, August 08, 2002 at 11:00 PM (CDT)
PRAISE THE LORD! We are thanking God for the good news about the naughty tumor, Charlie. May He continue to bless you and bring you back to good health. We enjoyed our visit with you on Monday. I especially liked reading to you. Did you know Opa and Liam were racing in the back yard and next year you can join in on the fun--maybe even this fall. How great it was to hear Jack laugh. What a cheerful little brother you have. Yes, it was nice to visit with your mom too!!! We are looking forward to seeing you again soon. Love Opa and Oma
Opa and Oma <rckiehne@smig.net>
USA - Thursday, August 08, 2002 at 10:57 PM (CDT)
Hello All,
Glad to see that you and Charlie are hanging in there.

I had Charlie on my mind this morning. As it turns out Paul, I passed you and Liam Larpenteur. It was about noon and you were headed east near Victoria. I wasn't in a good position to flag you down.

Just wanted you to know I'm thinking of you and praying for Charlie

Roz <clearscience@cs.com>
- Thursday, August 08, 2002 at 01:30 PM (CDT)
I just want you to know your family is in our prayers. Prayers for Charlie to stay strong! Our son Carter was diagnosed w/ hepatoblastoma at 4 months old. He was treated at Univ. of Minn. Fairview Children's Hospital. I can't say enough good about the care. They saved our son's life!! Currently Carter is in remission. It has been 8 months since his last chemotherapy. We pray everyday for the children that are fighting this disease and the many other horrible diseases that are affecting our children. Good Luck to Charlie!! Again, You are in our prayers!!
Diane Thomas & family

Diane Thomas
RC , SD USA - Wednesday, August 07, 2002 at 11:24 PM (CDT)
I know that you may not remember us, but we are related to Julie Kiehne. I am Jim Lindsay's (Julie's brother)daughter. We would just like for you to know that we hope that Charlie get's better soon. We will have him in our prayers everynight. I have a son Eric Jr., who is 3 1/2 and a daughter Emily, who is 6 months old. We would like you to get better soon Charlie and maybe you can meet Eric, Jr. and get together and play. I know that this might sound strange, but if there is anything that we can do for you, please let us know. Our number is 507-385-1764. Our address is 1952 Lancelot LN. N Mankato MN 56003!
Sincerly,
The Geisthardts=)

Eric, Melissa, Eric, Jr., & Emily Geisthardt <meeeg4@cs.com>
N Mankato, MN US - Wednesday, August 07, 2002 at 10:07 PM (CDT)
Hello Charlie and family,
Megan and Matthew want to come and eat what's on your menu. Glad to hear that Jack is eating too! We will be in touch with Heather soon and hope to stay Sat. night. We Love you very much and pray for you each day.

Julie & Tim Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN USA - Monday, August 05, 2002 at 09:46 PM (CDT)
Dear Charlie,
My name is Brody, my brother's name is Brock and my baby brother's name is Benjamin. My Grandpa used to teach at Alex Tech with your Grandpa Bill. We are all very sorry that you haven't been feeling good. We think about you and pray for you each day. I hope to meet you someday. P.S. I like your orange shirt, I have one, too. Stay strong and get well soon

Brody Erdman <krissy_e4@hotmail.com>
Alexandria, MN USA - Friday, August 02, 2002 at 09:07 PM (CDT)
Congratuations to Liam! I can hardly believe that he will be in first grade but after seeing the wonderful note that he wrote I can tell what a big and smart boy he is!! Can't wait to see Liam on Tuesday at 11 AM!
Joan

Joan Hershbell <jhershbe@visi.com>
St. Paul , MN Ramsey - Friday, August 02, 2002 at 03:30 PM (CDT)
Hi Charlie,
We miss you. We might be able to visit, if it's OK on Sat., Aug. 10. Javier LaRivere's baptism is on Sunday, Aug. 11. We are planning on staying at Heather's house Sat. night. Give your mom and dad a big hug and remember that we are thinking and praying for you all. We Love you!

Tim, Julie, Megan & Matthew Kiehne
Lanesboro, MN USA - Thursday, August 01, 2002 at 07:17 PM (CDT)
Dear Terese and family,Had tried several times to pull up charlies website but no luck. Finally ask clark[Bill} for your adresse and he said try again. I am so happy that little Charlie is home. Is'nt it wonderful what God can do??My wonderful church family is praying for Charlies recovery,[way down here in Stanley,Iowa. May God watch over you each and every day! We are also know as Oma and Opa,are the Kiehne's german also?? Wont you please let me know your adresse,so i can send Charlie a card?? God less you, ursula
Ursula Cole
Fayette, ia usa - Thursday, August 01, 2002 at 07:55 AM (CDT)
Dear Charlie, Liam, Jack, your Daddy and Mommy, We are so glad you had a great weekend without any medical calls. We had a great weekend too, but glad to be home again. It was so good to talk to you on the phone the other day, plus hearing you talk in the background when I talked to your Daddy on Saturday. With this hot weather you will have to try swimming again in your pool. Jesus loves you sooooo much and so do we. We continue to pray for your healing and the Lord being with all of you. Love Opa and Oma
Opa and Oma
USA - Monday, July 29, 2002 at 10:09 PM (CDT)
Charlie...
I can't even believe it... Oreo cookies and grape jelly-- You're amazing!!! Sometimes ishy squishy foods taste pretty good don't they! Saran Wrap and Pam spray... hmm, who'd have thunk it, that mommy is sooooo smart!!! Sounds like you had some exciting moments with the fire across the street... were the sirens too loud? Did they scare Jack? You'll have to be sure to remind him that it's okay and tell him what those special trucks do. Big brothers are perfect for teaching their little brother things. It's so exciting that Liam is reading more. Have you both found any dinosaur books to read together? Janelle came by with baby Carter today, he's very big and very cute! I don't know if she's passed the word yet but 9 lbs 12oz when he was born--he practically came out with teeth and talking. I still miss you and remember to tell those owies to take a hike!
Love...
Tricia

Tricia Armstrong
St. Paul, MN USA - Monday, July 29, 2002 at 08:19 PM (CDT)
Hello,
My daughter Rebekah (now 23 months old) was diagnosed with Hepatoblastoma Stage III last September at 12 months of age. She has gone through 6 rounds of chemo, 2 c-line insertions, and two liver surgeries. She is doing remarkably well and now goes monthly for blood work and chest x-rays. We believe in the power of prayer and believe in the God of miracles. We will be praying for all of you and for extra strength and grace. Each day is a gift from God, and we cherish each one.
Take Care.

Toni Mason

Toni Mason
Somerset, KY USA - Thursday, July 25, 2002 at 10:19 PM (CDT)
Hey Charlie- How bout those OREOS! My favorite too! They have another new flavor Chocolate/peanut butter creme--oh good. Keep up the fight. Love to you Charlie and your GREAT
family. Remember me and your schoolbus friends, Love Miss

DEB

Deb Kinsel
St. Paul, MN Ramsey - Thursday, July 25, 2002 at 02:46 PM (CDT)
Charlie, I just read about you eating an Oreo cookie!!!! Did you know that they are my FAVORITE cookie!! Especially the double stuffs!!! When you are feeling better you will have to stop by school and share a few with me. LOVE those Oreo's!! And then I read about the jelly!!!??? I am sooooo proud of you for trying those different textures and tastes. I know you are going through alot right now, but there is nothing better than an Oreo and juice to make things "look" better.

I'm thinking of you (and checking the computer for more great news). Keep it up, Charlie. I am so proud of you. Hmmmm I think it's time for another double stuff Oreo. Later.......Miss Nancy

Nancy Simmet
Saint Paul, Mn Ramsey - Thursday, July 25, 2002 at 08:39 AM (CDT)
Love and prayers are with you.
Bev Stencel
North St. Paul, Mn USA - Wednesday, July 24, 2002 at 01:03 PM (CDT)
Charlie & Family -

I am glad to hear that your chemo is going pretty well. I know it's not much fun but hopefully soon you will be all better. My friend Moll went through many months of chemo and is now cancer free!

Good luck & God Bless

Mary Rose
Manassas, VA USA - Monday, July 22, 2002 at 11:47 PM (CDT)
Paul, Therese, Charlie, Liam & Jack: Hang in there Charlie. You all have already done an amazing job. Our thoughts and prayers are with you.
Lisa, Matt, Brandon & Mason Plowman
Minneapolis, MN USA - Monday, July 22, 2002 at 09:43 PM (CDT)
Charlie,
Daddy came home pretty sore and he walks funny. It must have been the fall off the roof while shingling. He says no wrestling until he's himself again. Mom just doesn't wrestle the same. We are praying for you and your medicine at the hospital. We Love You very, very much!

Megan & Matthew Kiehne
Lanesboro, MN USA - Monday, July 22, 2002 at 09:22 PM (CDT)
Hi all. A special set of prayers are going out to you today as you start round 2!!
Terese - it was so good to see you last night and eat cheesecake! (which by the way has already gone straight to my thighs....)

Chris, Jim, Allison and Justin Myrah
Apple Valley, MN USA - Monday, July 22, 2002 at 07:46 AM (CDT)
HI:
Just reading your site and problems with adhesive tape. My son had the same problem and we found that Skin So Soft by Avon worked very well to remove the adhesive from his skin with no pain. Wishing you well. My son is now 18 months post chemo and doing well. Hopefully this works for you.

Michelle
Edmonton, AB Canada - Sunday, July 21, 2002 at 04:45 PM (CDT)
Hello -
I myself am chronically ill. I have a congenital heart defect, and also liver disease. I am married and 27 yrs old. I run a web page for children who are chronically or terminally ill. We send them beanie babies to make their day a little better and add them to our prayer list. Please stop in at http://www.cyberport.com/~beanie and let me know if I may send Charlie a beanie.

Love & Prayers Nikki McHattie

Nikki McHattie
Baden, PA USA - Sunday, July 21, 2002 at 03:55 PM (CDT)
Hi Charlie: You don't know me, but for the last few years I worked with Grandpa Bill and was his office partner at Alex Tech until this last June when I retired. I know how proud your Grandpa is of you and how special you are to your entire family. You have been and will always be a special blessing. I have five grandsons and know how important each and every one of them are to me. Two of them named Brock and Brody pray for you every night when they go to bed. Now that we have the e-mail address we can stay up to date on your progress and I will be sure to keep the boys informed as they don't have a computer. God bless you Charlie, always keep looking forward, stay stronger than a buffalo and remember how special you are.
Del Kirkeby
Alexandria, MN USA - Sunday, July 21, 2002 at 12:11 PM (CDT)
Hi Charlie,
I hope you are O.K. at home and at the hospital and I want you to come and play at my house. Daddy is at your house this weekend roofing the garage. Say HI to Daddy, Paul, Liam, Jack, Terese, Heather, Alicia. Megan is staying overnight at her friend's house. Love, Matthew Kiehne

Matthew Kiehne
Lanesboro, MN USA - Saturday, July 20, 2002 at 11:58 AM (CDT)
Dear Charlie et al, I am safely back from my adventure to Turkey and Greece. Prayed for you daily in my prayers. Glad to know you are doing somewhat better. Let me know if you want a visitor. It looks like your hospital stays will be short and most of the time you can be at home. That is good news. God bless You, I'll try to call sometime next week.
Lyn Lawyer
Arden Hills,, MN - Saturday, July 20, 2002 at 08:43 AM (CDT)
Hi Charlie and family:
I wanted to write a little note and let you know that you are all in my thoughts and prayers. I am glad to hear the tube feedings are going better and hope things continue to go in that direction. I am officially on leave now, but no baby yet. I will let you know. Continue to be strong Charlie, you have such a great family. I will be thinking of you all.
Janelle

Janelle Peterson
- Thursday, July 18, 2002 at 06:08 PM (CDT)
Hi Charlie!
I'm so glad you are feeling better now! I read your mom's journal entries and saw you had a few rough days and I am so glad those are behind you. I think of you every day - stay tough and know that many are thinking of you and your family.
Vashti, Joshua & Zachary

Vashti Eppler (preemie-l)
Yamhill, OR USA - Wednesday, July 17, 2002 at 11:33 PM (CDT)
Charlie...
I was so excited to see you today! I miss your smiling face every Monday afternoon more than you know. Your mom says you're feeling better and I'm so glad you are sleeping so you have more energy to play with your brothers. I hope you liked the Pizza Goldfish. Have you ever seen such big fishy crackers? It's too bad they weren't more spicy, we'll have to work on that. If you're feeling up to it maybe you could ask Liam read you some books or maybe play Crunch on the computer. Liam's such a GREAT big brother I'm sure he'd love to do it! Stay strong and be a big tough Charlieasaurus!
Love, Tricia

Tricia Armstrong
St. Paul, MN USA - Wednesday, July 17, 2002 at 10:25 PM (CDT)
Hello Charlie!
Matthew and I had a good time visiting you and playing in the hospital kid's room. We especially liked the video games and puzzles. It was good to see you. We can't wait to play with you at your house again. We love you. Your cousin, Megan Kiehne

Megan Kiehne
Lanesboro, MN USA - Wednesday, July 17, 2002 at 10:07 PM (CDT)
Charlie;
We're still praying for you. It is so nice to have the web page to refer to. I'm sure your mom and dad also find it helpful in updating everyone! Have you met any new friends in the hospital? As you know, you are at a good hospital with lots of fun "kid stuff" to do. Glad to hear that you are sleeping better, I hope it's a trend. Sorry to hear Grandma Lewis was in an accident. Tell Grandpa to get her an Expedition or Navigator, or safer yet, a 18-wheeler! She could give you rides then! What Fun!
Tell your parents that they are in our prayers as well.
Peter and Fawn Lindbloom

Peter Lindbloom
- Wednesday, July 17, 2002 at 12:24 PM (CDT)
Hello Charlie and Family,
Miss Tina and Miss Ginny told me your news and what a strong and courageous fight you are all putting up. Charlie, watch out your window for my baby birds which flew out of their nest this morning. Their mommy and daddy made their nest right outside my window in the pot of beautiful flowers I got for mother's day. We were so lucky to watch the eggs hatch and the babies grow and eat and peep with their big beaks. Just like we have been lucky to watch such a special boy as you, make your big steps in the world. Keep fighting Charlie! My thoughts are with you, your mommy and daddy and brothers.
With much affection,

Susan Williams (ECSE Social Worker, Crossroads)
St. Paul, MN 55117 - Wednesday, July 17, 2002 at 11:09 AM (CDT)
Dear Charlie, Liam, Jack, and your Daddy and Mommy, We missed you and your mommy at Great Oma's 90th birthday party, but we left room in the pictures to have you and your mommy added. We are thankful you are home again and feeling more like yourself. What a blessing. We also praise and thank God your Grandma Lewis came out of her accident without a scratch. We look forward to seeing you again out of the hospital and the smiley little guy we know you are. Love, Opa and Oma
Opa and Oma <rckiehne@smig.net>
USA - Tuesday, July 16, 2002 at 09:20 PM (CDT)
Hello Kiehnes: I am a RN who worked with Grandma Kiehne for many years. She gave me the web address so I can keep up with the Charlie news. No one has more Faith than Grandma K. Our prayers are with you and this too will someday be a memory; God willing. Blessing to you all.
Darlene Walth <rpwalth@hotmail.com>
Austin, Mn USA - Sunday, July 14, 2002 at 08:57 PM (CDT)
Hello to all the Kiehnes;
I haven't been able to pull up the web page for Charlie on my home computer, so I just read all the updates today at work. I'm so sorry to hear about the rough course Charlie is having. I am continually amazed, though, at the positive attitude and strength of Paul and Terese. And in Charlie's case it looks like the apple doesn't fall far from the tree. You are all in my thoughts and prayers. I'm also amazed that you have the time and presence of mind to give such wonderful updates. Thank you. I was also very dismayed to hear what an ordeal your ER visit was. It shouldn't be that way as we are supposedly one organization! I will follow your progress.
Love, Anne S.

Anne Stevens <anniet4@hotmail.com>
St. Paul, MN USA - Saturday, July 13, 2002 at 07:23 PM (CDT)
Yea Charlie! I am so glad to hear you are having a good day. Must be the goo, maybe your mom and dad should market their recipe! (ha, ha) Anyway, you are never far from my thoughts and I am still praying every single day for you and your family.


Chris, Jim, Justin and Allison <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Thursday, July 11, 2002 at 03:05 PM (CDT)
Hello Charlie,
So you are on the GOO again. We are glad to hear that you are feeling more like yourself today. Megan and Matthew are thinking and praying for you. They would love to come and visit you sometime when the time is right. We are visiting Amy & Eric Zornow, their triplets, and their Charlie on Friday, July 12 at their cabin in Madison Lake (near Mankato). Tim is coming to help Heather roof on July 20. Get your LEGOS set up and ready...Tim wants to play. We LOVE YOU very, very much!!

Tim, Julie, Megan & Matthew Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN USA - Wednesday, July 10, 2002 at 09:44 PM (CDT)
Hi Charlie! I'm so glad to hear that you're feeling better today and back to getting your GOO. Hopefully, you'll be able to fatten up a bit before your next round of chemo.

I talked to your mom yesterday and she thought it would be okay if I brought Max and Oliver for a visit next week. Max is really excited to see you and is looking forward to playing with all of your great toys! I'm sure Oliver will be happy to see you, too. Let your mommy know if there is anything special that we can bring for you. I've heard you've already gotten lots of loot from caring friends and relatives. At least that's one positive to going through all of this!

Give Liam and Jack a big squeeze for me!

Robyn, Rick, Max, and Oliver Hennen <RJHennen@msn.com>
Cold Spring, MN - Wednesday, July 10, 2002 at 04:53 PM (CDT)
My Dear Charlie,
I am thinking about you each day knowing how hard you are working at staying strong. I would like to come to visit you sometime and maybe we could read stories together and sing some songs and maybe just be together for awhile. You can talk to your Mom and see what would be a good time for you . I teach every day of the week but I am done by 2:00 each afternoon.
Love and lots of hugs,
Miss alice

Miss alice <alice.sunseri@spps.org>
St.Paul, MN. usa - Wednesday, July 10, 2002 at 10:16 AM (CDT)
Hi Charlie

Although I've never met you I feel like I know you. Your Grandpa Lewis has shared your ordeal with us and you are truly an amazing young man! Our prayers are with you and your family. We wish you the very best and we're "rootin" for you. God bless you!


Bob Defries <Hstroller@aol.com>
St Cloud, MN USA - Wednesday, July 10, 2002 at 08:33 AM (CDT)
Hey guys: I finally was able to get Charlie's page.....You all have been in our thoughts and prayers...also on our church's prayer chain....We know the power of prayer, and know that God can give you "Peace in the midst of the storm"./...He is so faithful. So happy to see your positive thoughts....Uncle Donavon, Aunt Lois, Todd and Heidi and Ethan
Lois Kuehnast <loisk@communitynational.com>
northfield, MN - Tuesday, July 09, 2002 at 07:46 PM (CDT)
Hi to all of you! I so much appreciate the updates on Charlie. No one can really imagine how this is for all of you but it helps to keep informed. I am available to help with Liam and/or Jack so feel free to phone 645-6173.
Love, Joan

Joan Hershbell <jhershbe@visi.com>
St, Paul, Mn USA - Tuesday, July 09, 2002 at 11:50 AM (CDT)
Hey Charlie.....What in the world are you up to now!! I'm sorry to hear you aren't feeling so good. When you feel better I'll come by and bring some SPICY chips.

Feel better soon!!!!! My thoughts are with you and the whole family. Miss Nancy

Nancy Simmet <Nancy.Simmet@spps.org>
St. Paul, Mn USA - Tuesday, July 09, 2002 at 11:33 AM (CDT)
Dear Charlie,
It is our fervent hope and prayer that you will soon feel better. You are a very special little boy, and we have every confidence that you will beat this thing. You are so very fortunate to have your mom, who has always been very special to us, and your dad, who has become very special to us. Your mom and dad have shown love and courage that goes beyond human understanding, not only for their love for you, and their ability to deal with difficult circumstances, but for their love for each other, and their strength to pull together as a team, no matter how difficult things become. We eagerly look forward to when you are 6, and can come and visit us at the lake on your own, riding the go-karts, swimming in the lake, and maybe even having ice cream for breakfast..your choice of flavors! Liam remembered you in his prayers each night he was with us, and he loves you very much. We enjoyed his visit with us, and anticipate the day when you can do the same. Your cute little brother Jack will have to wait a little longer, but he'll have his turn too! With love, Grandma and Grandpa Lewis

Carol and Bill Lewis <blewis65@aol.com>
Cold Spring, MN USA - Monday, July 08, 2002 at 08:41 PM (CDT)
Charlie, I just learned that you are not feeling so good right now. I am so sorry to hear that, and hoping that it gets a little better every day! Remember when we went to the zoo with your school class and saw the big buffalo there? You are strong like a buffalo so I know you can make it through this! I will be reading about you, checking your pictures and thinking about you each day. My best to mom and dad and your brothers too! Love, Ms. Ginny

Ginny Herriges <rgdmherr@aol.com>
St.Paul, MN USA - Monday, July 08, 2002 at 11:45 AM (CDT)
Just wanted to let you all know that Charlie and your whole family is in our prayers. If anyone is ready for this fight, Charlie is, he came into the world fighting, and he's not gonna stop now. I look forward to reading more updates :-)
Love and Prayers,
Maureen & James Patrick 30ish weeker, now 3

Maureen from Preemie-l <mosiphine@aol.com>
Washington, DC USA - Monday, July 08, 2002 at 12:35 AM (CDT)
Charlie and Family,
May the Lord watch over all of you and may the Lord's healing power be with Charlie as he faces this new battle! Charlie you and your family are in our thoughts and prayers!
We are friends of grandma and pa Kiehne.

Clayton & Ellen Petersen <clelpete@charter.net>
Austin, MN USA - Sunday, July 07, 2002 at 02:07 PM (CDT)
Charlie,
You are such a strong and amazing boy! It must be great to be home with your mommy and daddy and soon your brothers. Keep smiling and keep eating! We send prayers and well wishes for you daily.
Vashti, Joshua & Zachary

Vashti Eppler (Preemie-l) <cveppler@easystreet.com>
Yamhill, OR USA - Saturday, July 06, 2002 at 11:59 PM (CDT)
Hello!
You continue to amaze me - after everything, there is still more and yet you tackle it all with such determination! My heart aches for you and I wish all the positive energy possible your way.
You are never far from my thoughts and prayers.

Chris Engstran <engstran@aol.com>
White Bear Lake, MN - Friday, July 05, 2002 at 08:51 AM (CDT)
What a terrible thing you are going through. My heart goes out to Charlie and his family. Personally I am 60 years old and have terminal pancreatic cancer. I likely will not live the summer, so I can relate with some of the frustrations you have had and would like to offer you just a little advice.

1. You must learn as much as possible about Charlies cancer, what treatment is available and if there are possible alternative teatments.

2. DO NOT, under and circumstances, put your full faith and trust in any one doctor or clinic. There is an enormous amount of work being done on this disease, but few doctors are current. There is just too much information for them to digest, even if they had the time, which most don't.

To give you an example I was examined at Hennepin County Medical Center, Hubert H. Humphery Cancer Center and the Parker-Hughes Cancer Center. All of these are good clinics with dedicated doctors, yet in some areas that were critical I got totally opposite opinions. You have to be able to sort all of this out. Probably the best place to go is the web. Just keep looking and don't give up.

3. DEMAND what you want. You are paying them big bucks to take care of Charlie. You have every right to talk to your doctor when you want to talk to him. Of course one has to be reasonable, but don't accept a run around just because a nurse is busy. That is what they get paid for. And if you run into a doctor who won't take the time to sit and talk to you and explain what is going on, DUMP THEM. There are lots of excellet doctors out there, but by the same token there are plenty who are incompetant or just don't care.

This is such a hard thing and no one has all the answers. Most of us have few answers. There are no words that can express the greif I'm sure is tearing you appart. Please know that you are in the prayers of my family.


Paul Williams <CDS256@aol.com>
Blaine, MN USA - Friday, July 05, 2002 at 08:48 AM (CDT)
Dear Charlie, Terese, Paul and Jack: All of us at St. Matthew's have you very much in our thoughts and prayers. We appreciate having this electronic means of keeping up with what is happening to you. Keep on fighting Charlie--God is watching over you!

Much, much love!

Marilyn and John Grantham <grant005@umn.edu>
St. Paul, MN USA - Friday, July 05, 2002 at 08:34 AM (CDT)
Today, Charlie, we celebrate our nation's independence. Next July 4th we will celebrate July 4th as your day of independence from cancer. You will be running with your cousins and asking when the fireworks will start. We were at the parade in Harmony and the word spread about your illness and God is being bombarded with prayers on your behalf. Great Opa and Great Oma asked about you and your family. The messages in the guest book are so wonderful from everyone and we thank them for uplifting you in prayer before our Lord and Savior. Jesus loves you and so do we. Love Opa and Oma
Opa and Oma <rckiehne@smig.net>
USA - Thursday, July 04, 2002 at 06:23 PM (CDT)
Our prayers are with you and Charlie and for his complete recovery. Here are some thoughts on what cancer cannot do:
Cancer is so limited . . .
It cannot cripple Love
It cannot shatter Hope
It cannot corrode Faith
It cannot destroy Peace
It cannot kill Friendship
It cannot suppress Memories
It cannot silence Courage
It cannot invade the Soul
It cannot steal eternal Life
It cannot conquer the Spirit
Author Unknown
Remember Jer. 29:11
Ken & Albina Schuster

Ken & Albina Schuster <schusterka@prodigy.net>
Overland Park, KS - Thursday, July 04, 2002 at 12:26 PM (CDT)
Charlie & family: Ever since we heard the news you have been in our thoughts and prayers. I know God has given each of you a special guardian angel to see you through the days and weeks ahead. It's nice to know you have someone so strong to lean on and ask for help as our God. I can tell by your journal entries that he has given each of you the strength that is needed to deal with this new obstacle. It's wonderful to see so many people that are praying for you. You are all very blessed to have so many friends and family that care. Once again, know that we are thinking of you. The Koob's from Humboldt, IA
Rick, Renee, Kaycee, and Ryan Koob <kkranch@goldfieldaccess.net>
Humboldt, IA USA - Wednesday, July 03, 2002 at 09:51 PM (CDT)
Hello Charlie and all; hope you are feeling a little better Charlie - it is so hard when you don't feel good. We all love you! So many people love you, pray for you and want you to be well again, sweetie!

Therese, the words from Jamie Chatari - that's my daughter Lynn (now known as Jamie!), and her family in Texas. We are keeping them posted. We're with you in thoughts and prayers. Wish we were closer geographically to really help!

Sandi & Doug Suddaby <sandi@sandisuddaby.com>
Sarasota, FL USA - Wednesday, July 03, 2002 at 03:29 PM (CDT)
Charlie and his mom and dad--We are members of Austin's St.John's and are on their prayer chain - we have added all of you to our personal prayer list. We pray for Charlie's recovery
Dave & Carol King <kings@smig.net>
Austin, MN USA - Wednesday, July 03, 2002 at 11:22 AM (CDT)
Hi Charlie,you're in our hearts and in our prayers. We'll have to make sure and get some Cheez-Its for you in Sunday school this fall!
Ann Nerland <Banerland@attbi.com>
St. Paul, MN USA - Wednesday, July 03, 2002 at 09:21 AM (CDT)
May God give you and your family the peace you need as you continue to look to HIM. Remember to ask HIM for HIS strengh, guidance,understanding, and acceptance as you journey down another road in your childs life. Never forget how HE has blessed you and will contiue to bless you as you go to HIM. Remember God makes no mistakes and HE leads and every path that you take until you reach your final HOME....HEAVEN.... It will be worth it all when we see JESUS. Keep looking up!
Cindy Kendall <july141971@yahoo.com>
Hastings, MN USA - Wednesday, July 03, 2002 at 01:55 AM (CDT)
Charlie,
Samantha and Matson pray for you every night. They tell God that they love you and that he needs to make you better very soon. We think of you every day! We will continue to pray for you, your parents, your brothers and the doctors and nurses that will care for you in the weeks to come.

Love,
Ross and Melissa, Samantha and Matson Kiehne

Melissa Kiehne <liskiehne@hotmail.com>
Saint Peter, MN USA - Tuesday, July 02, 2002 at 11:42 PM (CDT)
Dear Terese, Paul, Liam, Charlie & Jack, A big hug to each of you! You are in my prayers several times a day. When Liam is finished with summerschool perhaps he would like to come over to swim with me some day.
Love, Joan

Joan Hershbell <jhershbe@visi.com>
St.Paul, MN USA - Tuesday, July 02, 2002 at 02:35 PM (CDT)
He is a very handsom little boy. I am glad to hear that he is out of the hospital. My prayers are with you.
Melissa Wessels <supergenius@knology.net>
Montgomery, AL USA - Tuesday, July 02, 2002 at 12:51 PM (CDT)
Hi Charlie, Paul, Terese, Liam and Jack! Charlie, I'm sure you don't remember us, but my wife Cathy and I met you awhile back at Carleton, and we remember you. We've loved your Mom and Dad for a long time, and we love you and your whole family, too. We're happy you're home, we're praying for you all, and we hope you feel better really soon. God bless you, and hugs to all the Kiehnes from your Kentucky friends.
Scott Kasierski <skasierski@wwac-law.com>
Hopkinsville, KY USA - Tuesday, July 02, 2002 at 11:37 AM (CDT)
Charlie and family, I'm a friend of your Grandma Annete, she has told me of your struggle from birth and wha t a beautiful child you are. May the Lord bless you with his healing powers so you may go home healthy again. We are praying for you all.
Jan Andree <jdandree@hotmail.com>
Brownsdale, Mn USA - Monday, July 01, 2002 at 10:39 PM (CDT)
Praise the Lord--you are home Charlie. We are elated. We pray you will tolerate the feedings. I planted out more flowers tonight. The breeze helped keep the mosquitoes away. I pulled some radishes for supper and Opa's dinner tomorrow. Hugs and lots of love to all of you. Love Opa and Oma
Opa and Oma <rckiehne@smig.net>
USA - Monday, July 01, 2002 at 10:12 PM (CDT)
Paul, Terese, Liam, Charlie, & Jack,
We think of you everyday and Megan & Matthew talk about playing with "the boys" in St. Paul. We hope that Charlie is feeling as "tough as a buffalo" (Charlie's words) and hugging his stuffed buffalo toy. We Love you all very much!

Tim, Julie, Megan & Matthew Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN` USA - Monday, July 01, 2002 at 09:58 PM (CDT)
Paul and Terese and the kidlets -
I can't stop thinking about you and hoping that your little tough guy is doing okay. Sending electronic hugs. . . .

Sharon Stern <sstern@facstaff.wisc.edu>
Madison, WI USA - Monday, July 01, 2002 at 09:19 PM (CDT)
Opa and I pray you have "flown the coop" today Charlie. We know how much you want to go home (Daddy and Mommy too) and you are there. It was good to see you yesterday. We saw Heather and Alicia after we saw you and had supper with them. Sidney was very glad when we arrived home. Opa looked at the lawn and decided it was time to mow again. Tonight he will be singing. Will be waiting to check the journal before we go to bed to see if you are home. Love Opa and Oma
Opa and Oma <rckiehne@smig.net>
USA - Monday, July 01, 2002 at 05:31 PM (CDT)
I read your postings on preemie-L, and this comes with prayers, love and a big hug (for I'm sure you can use one about now)!
Viviana <VivMarina@aol.com>
CA - Monday, July 01, 2002 at 04:58 PM (CDT)
Dear Charlie,
You and your family are in my thoughts and prayers. As a cancer survivor myself as well as a preemie mom, I know first hand that God does listen and works miracles! God bless you!

Julie Paschke (from preemie-l) <mpaschke@new.rr.com>
Appleton, WI - Monday, July 01, 2002 at 02:49 PM (CDT)
Well Charlie, I'm glad to see that you cheat playing games with everyone and it wasn't just me. It was great seeing you happy on Thursday and watching your new Blues Clue movie.You were cranky on Saturday so you had a nap on Daddy's lap and he & I watched the Cubs/Sox baseball game.

I am hoping they spring you today so that we can have a BBQ in the backyard tonite. Can't wait to hear the news of your coming home.

Aunt Alicia <alicia_kiehne@hotmail.com>
St Paul, MN USA - Monday, July 01, 2002 at 11:33 AM (CDT)
Teresa, Charlie, & Family
We are keeping you all in our prayers and hoping that the love & support you share with one another will help Charlie (and all of you) to remain strong and conquer this thing!!!!

Jake, Ramonda, & Telah (preemie-l'ers) <zinobile@innernet.net>
Orbisonia, PA US - Monday, July 01, 2002 at 07:05 AM (CDT)
We are praying for all of you, and especially for healing for Charlie. Please let me know how I can help, especially with Lyn gone these next three weeks. 651-482-0261
Lydia H. Brown <lydiabrown@usfamily.net>
North Oaks, MN USA - Sunday, June 30, 2002 at 01:54 PM (CDT)
Hi Charlie, Terese, Paul, Liam and of course Jack,

I was glad I got to see you at the hospital last Mon. When I went down to change clothes found the note you had left for me, Terese. Just want you to know you will stay in my prayers. Now that I found your web page I will keep checking. If there is anything I can do to help let me know.


Kay Konkel <dkonkel4725@attbi.com>
St Paul, MN US of A - Sunday, June 30, 2002 at 12:02 AM (CDT)
Dear Charlie - Hi there !! Although you don't know me, my boys ,Seth and Kyle were in the hospital with you a very long time ago, when you were a very little boy (as were they). You 3 struggled through a long NICU stay together and came out of there , happy, and STRONG boys. I am so glad that you are so strong for you are going to need those big muscles in the months to come. You probably aren't going to feel very good, and that makes me, and Seth and Kyle very sad. But the good news is that very soon this will all be behind you ( just like that long NICU stay) and you and Seth and Kyle can play at the park together !!! We will keep the slides slippery and the swings swinging as we wait for you !!! We were also thinking that you may want to play "super soakers" with us because it is so hot outside !!!! We will keep one filled with water just for you. Please feel better soon - give your mom,dad, and brothers a big hug for us........ love, your NICU pals, Seth and Kyle Parry ( and mom, Cari)
Cari, Seth, and Kyle Parry <clparry@attbi.com>
Stillwater, mn - Saturday, June 29, 2002 at 10:35 PM (CDT)
Dear Paul, Terese, Charlie, Liam and Jack,
I just checked my church email address, and heard the news about Charlie. I am very saddened to hear about what you are facing. I had my oldest daughter liz in the hospital for just two weeks, and it was probably the most stressful two weeks of my life.
I would like to help in any way I can.... housecleaning, cooking, entertaining kids.
Holley

Holley Kramer <hkramer@goldengate.net>
st paul, mn us - Saturday, June 29, 2002 at 04:15 PM (CDT)
Charlie, I'm glad to hear that you're feeling well enough to want to go home. Hopefully, they'll spring you tomorrow!We're missing you this weekend at Grandma and Grandpa's house. Liam and Max went swimming yesterday and it just wasn't the same without you. Max keeps looking for you and asking why you're not here. We'll have to check with your mommy to see what the visiting rules will be when you get home. We'd love to see you, but certainly don't want to bring any bugs your way!

I gave Grandma your good luck lamb so that she can bring it back to you. We're also sending along Oliver's good luck puppy. Max and Oliver's Grandpa has lit a special candle for you at his church that will keep burning until you are through this battle. Oliver's candle is still burning, too, and it seemed to work for him!

Stay strong little man!

Robyn, Rick, Max, and Oliver Hennen <RJHennen@msn.com>
Cold Spring, MN - Saturday, June 29, 2002 at 02:29 PM (CDT)
We are sorry to learn of Charlie's problems and our hearts go out to him and all of you. He will be in our prayers.

friends of Grandma and Grandpa Kiehne

Ruth and Bob R. <rollo62@charter.net>
Austin, MN U.S.A. - Saturday, June 29, 2002 at 09:47 AM (CDT)
Our Thursday nite prayer group at Grace Lutheran in Austin continues to pray for Charlie and your whole family.
We have seen miracles happen. We are asking for one now for Charlie and we continue to pray for Jack, also.

Velma Vick <vevgrm@smig.net>
Austin, Mn USA - Friday, June 28, 2002 at 04:25 PM (CDT)
Terese and Paul
We had recent contact with your Mom and Dad.Since our move to Wisconsin we miss our favorite neighbors.I am sorry to hear about Charlie's illness and hope everything turns around for him soon.He is a beautiful little boy.You are in our prayers.God will provide the strength to get you through this.
Congratulations on the new addition to your family,Jack.I'm
glad your Mom is there to help you.I will check the site again soon.
Love
Al and Elaine Stern

Elaine Stern <elaine.stern@omnitechcorp.com>
Oconomowoc, WI USA - Friday, June 28, 2002 at 02:48 PM (CDT)
Hi Charlie, We have so many prayers and hugs for you these days. You are on our minds constantly. We hope things today can proceed as planned without any surprises. Sometimes surprises are good and we will take them anytime. Tell dad, mom,Liam and Jack that we have hugs and prayers for them, too. Will be in touch later. We send our love.
Chuck and Marietta <cmdenn@means.net>
Harmony, MN - Friday, June 28, 2002 at 10:12 AM (CDT)
Dear Charlie and Family,
Today is Friday June 28th. I am believe you will experiece chemo today. I am thinking about you and know that you have to be one of the bravest little boys I know! I know your Grandpa Bill and he always tells me how much spunk you have...and that you have always been a little "fighter" against the odds that you have faced. I have two kids, Rachael(7years) and Matthew(5 years)and they have met you a couple of years ago..back when you were a lot smaller! My thoughts and prayers are with you today....and remember...God is watching over you today and always! Good luck today and be strong!
Denise, Stephen, Rachael and Matthew Prozinski

Denise Prozinski <dprozinski@hotmail.com>
Cold Spring , MN USA - Friday, June 28, 2002 at 08:20 AM (CDT)
Paul, Therese, Liam, Charlie and Jack,
I am thinking of you every single day and praying hard. I just wanted you to know that tomorrow I will be sending even more prayers than usual as you undergo your first chemo. Good luck with everything, I hope it all goes as well as can be.
Hugs to Charlie from Justin and Allison! High five to Liam, and a big slurpy baby kiss to Jack!
Chris

Chris Myrah <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Thursday, June 27, 2002 at 01:19 PM (CDT)
Dear Parents of Charlie,

I know your Grandma Annette from my sister Becky Gorman. I had a multiple severely handicapped daughter, Melissa, who had cancer twice in her young life. Once at 2 months old (bi-lateral retinoblastoma where she lost her left eye to that cancer) and once at 9 1/2 years old, which took her life. She passed away 5 years ago on July 21st. I just wanted you to know that I KNOW HOW YOU FEEL. I know how important that is, to know there are other people that feel as horrible as you feel and that understand your frustration with the doctors and hospitals and the stupid comments that people inadvertantly make. My husband Jim and I are praying hard for Charlie. We never would have made it through Melissa's life without God. May God bless all of you and keep you awake while you drive back and forth, bless your finances and this precious time with Charlie. We pray for healing and that Charlie won't suffer from the effects of the chemo. I will continue to check your webpage and keep in touch with Annette.

Cindy Jayes <jimjayes@smig.net>
Austin, MN United States - Thursday, June 27, 2002 at 09:38 AM (CDT)
Charlie, Therese, Paul, Liam & Jack, Please know that you are in my prayers and my heart. I am sorry I won't be around the next few weeks, but you will hear from me as soon as I am back from my trip. God bless You and hold you ever close. St. Matthew's is praying for you, too.
Lyn Lawyer <lynlaw@attbi.com>
- Thursday, June 27, 2002 at 06:33 AM (CDT)
Hello Paul, Terese, Liam, Charlie & Jack...we are thinking of all of you each day...our hearts feel deeply for you and we are in prayer for your strength. Last Sunday Bethlehem Lutheran Church in Lanesboro had "Church on the Farm" and the prayer chain is continuing to spread. We Love you!!
Julie Kiehne <tjkiehne@acegroup.cc>
Lanesboro, MN - Wednesday, June 26, 2002 at 10:40 PM (CDT)
I am from St. Michaels Lutheran Church where your Oma plays organ for us. We have you on our prayer chain once again. I have you, and your mom and dad in my thoughts and prayers. I am a friend of your opa and oma.
Donna Stoelk <rckiehne@smig.net>
Austin, Mn - Wednesday, June 26, 2002 at 09:53 PM (CDT)
Paul & Terese, We have been reading Charlie's site every day and hugging our own little guys closer as we try to imagine how tough this must be on all of you. We send our prayers for healing, humor, and lots of love your way. The Carleton crowd is with you!
Nancy Withbroe, Paul Smolinsky, Ben & Peter <withbroen@aol.com>
Washington, DC - Wednesday, June 26, 2002 at 05:45 PM (CDT)
Dear Charlie and family,
Your pictures from this website lit up my day! You are a happy guy who always brightens the room during Sunday School. You have a wonderful mom and dad, and many friends who love you and are praying for you.
Take care!

Bruce Nerland <bruce.j.nerland@rssmb.com>
St. Paul, MN - Wednesday, June 26, 2002 at 02:47 PM (CDT)
It was good to see you at home yesterday if only for a little while. I enjoyed our chat about the differences between an elephant and a chameleon. I will see you soon!
Auntie "Header" <hkiehne@hotmail.com>
St Paul, MN USA - Wednesday, June 26, 2002 at 07:34 AM (CDT)
Hi Charlie, We are so very sorry to hear you have another hurdle to overcome. Our prayer is that God will hold you in His hands and bless you; that He will give you the strength to endure what treatment is necessary for your healing; that He will bless your loving family as they go through this very tough time with you; that He will guide the Doctors in choosing the very best course of treatment for your total healing. We have thought of what you are dealing with and prayed for you so much since we heard a couple of days ago. Paul, Terese, Liam and Jack, we will keep in touch. Love,
Chuck and Marietta <cmdenn@means.net>
Harmony, MN - Tuesday, June 25, 2002 at 11:45 PM (CDT)
Hugs, prayers, wishes and hopes for a good result. Hang in there all of you!
Lea & Ernst <leharth@shaw.ca>
Vancouver, Canada - Tuesday, June 25, 2002 at 06:06 PM (CDT)
I'm sorry to intrude on your struggle...your friend, Chris, asked us to pray for you and your son....just wanted to let you know my heart is with your family at this time, God bless you with the strength needed and with good people around you....
Mitra Roberts <Mitra1993@aol.com>
Mason, OH USA - Tuesday, June 25, 2002 at 04:34 PM (CDT)
I was so saddened by your news!
You are all in my thoughts and prayers.
Take care.

Chris Engstran <cengstran@acnielsen.com>
White Bear Lake, MN - Tuesday, June 25, 2002 at 01:16 PM (CDT)
Dear Paul, Charlie and family,
My name is Sue and I work at Aveda with Paul (Charlie- I am Tye's mommy and she sends you a big hug!). I just wanted you to know that our family is saying prayers for Charlie's strength and full recovery. We also have a dear friend, Jackson Hay, who has been at Children's on and off since October with nueroblastoma- he has an incredible family who I am sure could offer you support should your paths cross. Stay strong, all our prayers are with you.

Sue Trondson <strondso@aveda.com>
- Tuesday, June 25, 2002 at 12:34 PM (CDT)
I wish the best for your child and your family,we will keep you all in our prayers and May God continuo to bless !!!!!
Lourdes Vera and family <lveraurys@aol.com>
Miami, Fl USA - Tuesday, June 25, 2002 at 10:54 AM (CDT)
Hi guys,

You don't know us, but we have been on the preemie list since August 2000 when our twins were born.

We all wish you the very best and we know that the next few months will take a toll, but if you stay tough and love each other you will come through.

We have our own cancer issues right now...our baby cat, well 9 year old, has sarcoma which is going to require radiation, chemo and then perhaps amputation of a back leg. We will all fight together!!

Again, we all wish you the best and we will say a prayer for you.

Love...Michael, Audrey, Josh & Sydney(the twins) and cats Maddy(cancer-hampered-one), Rascal and N.C. Hyman

Michael Hyman <hyman_michael@hotmail.com>
San Francisco, CA - Monday, June 24, 2002 at 11:43 PM (CDT)
Paul and Terese and family;
We will not give up praying for Charlie. Although we've only met him on a handful of occasions, we are frequently updated by Bill and Carol who attend Westwood with us. We too were saddened by this latest setback. Saddened isn't even the right word...shocked, as I'm sure you were. We praise God that He got you through the NICU days and that Charlie has such a positve outlook! Many people are praying for you. Don't give up hope! The days ahead will be difficult but strength can be found in the author and perfector of our faith. We love you guys and look forward to more updates. Glad to that you, and Charlie, are still keeping a sense of humor.
Friends in Christ;
Peter and Fawn Lindbloom

Peter and Fawn Lindbloom <plindbloom@astound.net>
Sartell, MN USA - Monday, June 24, 2002 at 09:47 PM (CDT)
Paul, Terese, Charlie and Liam and Jack,

I know you don't know us, but we know Bill and Carol from Westwood Church and did meet you when you visited. Our prayers are with you to endure all the roads ahead. We are praying for wisdom for the doctors with the chemo mix and continue strength and peace for ALL of you. tom and joanne dougherty

tom and joanne dougherty <realtorjoanne@chartermi.net>
st cloud, mn stearns - Monday, June 24, 2002 at 12:50 PM (CDT)
Paul, Terese, Charlie and Liam and Jack,

I know you don't know us, but we know Bill and Carol from Westwood Church and did meet you when you visited. Our prayers are with you to endure all the roads ahead. We are praying for wisdom for the doctors with the chemo mix and continue strength and peace for ALL of you. tom and joanne dougherty

tom and joanne dougherty <realtorjoanne@chartermi.net>
st cloud, mn stearns - Monday, June 24, 2002 at 12:49 PM (CDT)
Charlie,

You are the toughest little guy we know!! We are sending all of our best wishes to you each and every day. We hope you will be back to taking care of your business of just being a healthy little boy very soon.

John, Kim, McKenna, Rachel & Allie Dennstedt <kim.dennstedt@supervalu.com>
Burnsville, MN - Monday, June 24, 2002 at 11:47 AM (CDT)
Dear Kiehnes,
I wanted to let you know our prayers are a constant for you and the family. You are a very strong family and the love from God and from within the family unit will only strengthen in the days to come. We are very saddened by the news of Charlie. You all will be in our daily prayers.
Kelly Matson (Mark, Anders, Derek and Claire)

Kelly Matson <fishjelly@cfu.net>
Cedar Falls, Ia USA - Monday, June 24, 2002 at 11:31 AM (CDT)
Terese and Paul and family: We send our best thoughts and prayers to Charlie and all of you. Tessa said to tell Charlie she loves him! He is really a sweet, special boy! Louise Portuese (ECFE and playgroup friend)
Louise Portuese and family (especially Tessa to Charlie) <lportuese@aol.com>
St. Paul, MN USA - Monday, June 24, 2002 at 11:11 AM (CDT)
Therese, Paul, Liam Charlie and Jack,
We just heard the news this morning, and have read the history of the tumor diagnosis. We are all thinking of you and keeping you in our thoughts. We will miss you at playgroups and be thinking of you and sending wishes and prayers.
love
Kendra, John
Lucie and Tate Barton

Kendra Blevins Barton <blevinsbarton@yahoo.com>
St Paul, MN USA - Monday, June 24, 2002 at 10:50 AM (CDT)
We're pulling for you here, Charlie. All our love goes out to you, your brothers, and your Mommy & Daddy. You are all in our prayers. Many hugs - Lynn, Karl, Jennifer, Alex & Connor
(Jamie) Lynn Chatari <jchatari@houston.rr.com>
Houston, TX USA - Monday, June 24, 2002 at 09:53 AM (CDT)
Terese,Paul and family,
We just wanted to drop a quick note from Omaha to let you know that our thoughts and prayers are with you. We viewed the photos and Charlie is an adorable little boy. Please know that we are thinking of you and if you need anything please don't hesitate to let your parents know and they can let us know. I will pass on the news for other people to put you and Charlie in there prayers. Take Care.
The Baddings Linda, Paul, Amanda, Allison and Cody

Linda Badding <LindaBadding@aol.com>
Omaha, NE USA - Sunday, June 23, 2002 at 11:23 PM (CDT)
Hi Charlie, Today at the Kiehne reunion Opa told what a brave boy you are--tough as a Buffalo. You are now on the prayer list of your extended Kiehne family. We love you. See you soon. Love Opa and Oma
Opa and Oma <rckiehne@smig.net>
- Sunday, June 23, 2002 at 10:30 PM (CDT)
Dearest Charlie,
What an amazing young man you are, Charlie. You have endeared yourself to all of QA. We pray for your speedy recovery. Come soon to visit so you can give Bern a "high five."

Diane <dwilliam@aveda.com>
- Sunday, June 23, 2002 at 09:48 PM (CDT)
Charlie, I'm writing from way far away in Arizona. It's so hot you could fry an egg anywhere outside--on the car, sidewalk, even on your head (if you had a hat on). I hope you're feeling better every day now. You and your family are all doing through such a hard time. Your bigger family of friends are all there for you--and the nurses and doctors are too. TAKE CARE and make sure the Sunshine truck brings tons of Cheeze-Its for you to nibble on. That'll taste good. Love, Auntie Margot and Uncle Andrew
Margot and Andrew Mason-Jones <mmisfit@webTV.net>
Phoenix, AZ USA - Sunday, June 23, 2002 at 10:36 AM (CDT)
Charlie, we are all praying and pulling for you.
YOur cousins Aaron, Corbin, and Cody.

the Lewis cousins <lewis83@loretel.net>
Pelican Rapids, MN US - Saturday, June 22, 2002 at 11:57 AM (CDT)
You're a tough little kid Charlie!! You beat the odds before; you can beat them again! Prayers are with you for a speedy and complete recovery. God be with you.
Tom Dennstedt <tominthelab@lycos.com>
Albert Lea, MN USA - Saturday, June 22, 2002 at 08:51 AM (CDT)
My thoughts and prayers are with you all. I spoke with Trish yesterday, and she told me how to access this. Hope all goes well today.
Anne Stevens, RN <anniet4@hotmail.com>
St. Paul, MN USA - Friday, June 21, 2002 at 03:51 PM (CDT)
Our Prayers and thoughts are with you, and our hopes are high, good luck from your Aussie friends.
Helen, Jeff and James <najelen@ois.net.au>
Perth, WA Australia - Friday, June 21, 2002 at 08:28 AM (CDT)
Go Charlie go! You're a proven fighter and winner... and our prayers are with you.
Margaret, Dick, Lisa, Madeline & Megan <dickmarg@msn.com>
North Aurora, IL USA - Thursday, June 20, 2002 at 08:56 PM (CDT)
Charlie,
I work with your Aunt Header! But, I did meet you once while she was babysitting--and I thought you were such a nice young man! Anyway, I will be thinking and praying for you...you just need to be patient and strong. By the look of all these notes...you have a lot of people who love you! Take care.

Cathy Greeley <bcgreeley@cs.com>
Chanhassen, MN 55317 - Thursday, June 20, 2002 at 03:45 PM (CDT)
We are thinking of you and praying for you night and day. I really believe that everything will turn out, because it just has too! Stay strong and know you can lean on friends to help you through the tough times!
Love & hugs to all, Chris, Jim, Allison & Justin

Chris Myrah <chrismyrah@frontiernet.net>
Apple Valley, MN USA - Thursday, June 20, 2002 at 01:48 PM (CDT)
We are all so sorry to hear of Charlie's recent diagnosis. We will keep you all, especially Charlie, in our thoughts and prayers. And please let us know if there is anything we might be able to do to help.

The Freezes(Jeff, Julie, Sarah, Andrew, Emilie, & Amanda)

The Freezes <Juls0773@hotmail.com>
Cedar Rapids, IA 52405 - Thursday, June 20, 2002 at 01:18 PM (CDT)
God has given you to us, Charlie, through the miracle of your life so far. We love you dearly and pray for the surgeons and all the medical staff as you prepare for surgery tomorrow. We pray God will bring you through the surgery with great results and continue to keep you safe in His care.

Your Dad, Mom, Liam and Jack are in our prayers too to say nothing of all the people on prayer chains who are bringing you before the throne of God. We love you and your family very much. Jesus loves you even more. Love and Prayers, Opa and Oma

Opa and Oma Kiehne <rckiehne@smig.net>
Austin, Minn USA - Thursday, June 20, 2002 at 01:09 PM (CDT)
Charlie...Well I guess this means a break from drinking. I have always been and will always be in love with your smile and your amazing spirit and I know if anyone can handle and beat this it's you and your family. Be tough and strong, tell the nurses to be extra nice to you and ask to see their dinosaurs, I know they've got a bunch. I'll see you soon... love, Tricia
Tricia Armstrong <tricia.armstrong@childrenshc.org>
St. Paul, MN 55105 - Thursday, June 20, 2002 at 11:37 AM (CDT)
Charlie,

Another battle for you to face, but you are far from alone. You are an amazing little guy with endurance, energy and spirit. Alicia already said it, but it is such an uplifting feeling to see you and Liam smile and wave when we come up the walk. You both are ready for the hug you know I crave when I see you. There is no doubt in my mind that we will be able to win this battle.

Auntie "Header" <hkiehne@hotmail.com>
St Paul, MN 55117 - Thursday, June 20, 2002 at 11:27 AM (CDT)
The entire Kiehne family is in our prayers. Charlie's smile says everything-- Mom and Dad's strength and faith are paying off.
Jan Pavloski <pavloskij@ellsworth.k12.wi.us>
Ellsworth , WI United States - Thursday, June 20, 2002 at 11:14 AM (CDT)
Charlie, it just doesn't seem fair that you should have to go through something like this, but we are all quite confident that you will be just fine. You've dispayed a fighting spirit since the day you were born that has given you the strength to come through so much already. And you have been blessed with parents whose courage and faith seem limitless. They will take good care of you! Make sure you use this opportunity to get a little spoiled. You certainly deserve it! We'll be down within the next couple of days to visit you. Until then, we'll be praying...
Robyn, Rick, Max, and Oliver Hennen <RJHennen@msn.com>
Cold Spring, MN - Thursday, June 20, 2002 at 10:55 AM (CDT)
I find amazement in those who fight the battle with cancer everyday...their strength, bravery, and commitment to live! As I have witnessed the courage from my father who has battled cancer for seven years, I found that many times when I as a loved one could not keep going that his smile, words of reassurance for me, and faith spurred me on to fight another day with him. Thank you Alicia for sending this letter to me. Your nephew has already faced more in his few years than many of us will ever confront in our lifetime. I trust that his love will lift all of you up and keep you strong for him. Please know that I will be thinking of you and your entire family during this time and wish nothing but wonderful results...I will add him to my prayer list!
Heather Cronbaugh <Heather.Cronbaugh@co.freeborn.mn.us>
Albert Lea, MN USA - Thursday, June 20, 2002 at 09:58 AM (CDT)
Charlie, seeing you smile & wave in the kitchen window when I walk up the back is the best part of my walk to your house. I know that you will beat this. I will be with you all the way. You are a small guy with the biggest mountains to climb, but you will do it.
Aunt Alicia <alicia_kiehne@hotmail.com>
St Paul, MN USA - Thursday, June 20, 2002 at 08:32 AM (CDT)
You are all in my thoughts and prayers...
Tina Dale <tinadale@edinarealty.com>
Burnsville, MN - Thursday, June 20, 2002 at 08:32 AM (CDT)
Sorry to hear the latest news about Charlie. Hope and pray for the best for all of you and that he is truly as strong as a buffalo. Our hearts, thoughts and prayers are with you and this beautiful boy.
Sandi & Doug Suddaby <sandi@sandisuddaby.com>
Sarasota, FL USA - Thursday, June 20, 2002 at 07:17 AM (CDT)
Charlie & family,
We wish you many smiley faces. You are a tough little boy and we know you can beat this. Hugs and prayers to you all. Love,
Vashti, Josh & Zach

Vashti Eppler <cveppler@easystreet.com>
Yamhill, OR - Thursday, June 20, 2002 at 02:03 AM (CDT)
Charlie,

Hang in there! You are one tough guy :-)
Hugs and prayers for you and your family.

Eleanor <epdyne@paradise.net.nz>
Wellington, New Zealand - Wednesday, June 19, 2002 at 10:46 PM (CDT)
Charlie,

I can tell your mommy loves you very much. You and your family are in our prayers.

Candy <candyseth@aol.com>
- Wednesday, June 19, 2002 at 10:31 PM (CDT)

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