Welcome to Andrew's Web Page.
It has been provided to keep people updated about Drew and his progress- from his diagnosis of Hurler's Syndrome in May 2001, to the bone marrow transplant in August 2001, to post transplant recovery.

Hurlers Syndrome caused Andrew's body to lack an essential enzyme needed to break up mucoploysaccharides (sugar molecules). Without the enzyme, these sugar molecules would start building up in his body leading to severe damage to the brain, heart, liver,spleen and bones. This build up would eventually cause death.

Through his Bone Marrow Transplant, his body is now able to produce the missing enzyme, stop the progression of his disease, and even reverse some of the damage. Thanks to all for reading the updates and sharing your thoughts in the guestbook.

Journal

Friday, September 7, 2012 10:23 AM CDT

Andrew has had a wonderful summer filled with baseball. He got to play with the Orioles, at a fantasy camp,and take in an O's and a Sun's game. He got to play with the Frederick Keys, and of course the world famous St. Clair Challenger Team as, "Big Time Himes"!!
We spent a few days in O.C., enjoying the sun, sand and food. He continues to do Sat. morning Lowe's projects, with Daddy. He is joining a challenger bowling league, in a few days. He is REALLY looking forward to that.
He is with Mrs. Saylor again at Boonsboro Middle, in her life skills class. He goes out to join the main stream for Social Studies. He continues to be serviced by speach, ot, vision and a mobility teacher.
Speaking of vision, we took him to Johns Hopkins eye dr this summer and were disappointed that they did not feel that a corneal transplant would help him. We are going to see a glaucoma specialist there, in Oct.
All other systems are go and he has grown almost 2 inches, over the last year!!!

Anne

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Links:

E-mail Author: arhimes@msn.com

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