about CaringBridge  |  home page  |  view guestbook  |  view photos  |  journal history  |  make a tribute donation

Click here to go back to the main page.

Sunday, September 19, 2010 10:02 PM CDT

hello everyone. i know it has been to long. its just hard. thank you dana for your continued prays. if you could email me i would love to get together.

we are holding an alexs lemonade stand in Trevos memory on October 9th at
30 stauffer park lane
mohnton pa 19540

at THE FINISHLINE PUB

Tuesday, December 30, 2008 9:43 AM CST

Our little guy would be 6 years old today. It seems like everyday is harder than the one before. Missing him more than ever.

HAPPY BIRTHDAY TREVOR!

Friday, February 8, 2008 12:05 AM CST

Well Im not sure how many people still check this page. I havent been able to update scince Trevors passing. The pain of not being able to squeeze him is nothing short of paralizing. The days do not get easier but it is what it is. We just miss him so much.

I wanted to let everyone know that Alexs lemonade recently contacted us and asked if they could feature Trevor on there heros page. I am very honored. He will be up in the next few weeks on there web site. Hopefully his story will help raise some money for pediatric cancer. They are such an amazing organization and there are so many little ones in need. www.alexlemonade.org
Oh darn its been so long i cant even remember how to properly link this web site.

Thank you all for your support and prayers. I apologize to everyone that i have not gotten back to. I wish this entry sounded more inspirational but i dont really have it in me. I trust with all my heart that Trevor is watching over us and I cant help but wonder if all of those glorious stink bugs in my house are a sign that Trevor wants me to know he is ok. I have even considered feeding the cute little citters as Trevor would have liked that very much.

Tabby is doing great. She wears big girl undies and will soon be starting ballet. She talks about Trevor all the time and i even heard her yelling at him once to please give back her cat and he can just take Farley(our dog). I dont think Farley liked that idea.
Even bugwhacker (Trevors Fish)is doing well. I keep wondering scince Tevor had the worlds longest living sea monkeys, than this fish might outlive me.

Well i cant see though all these darn tears.
Thank you all for being so kind and patient.

Love Jackie

Saturday, March 31, 2007 4:48 PM CDT

Trevor James Gresko, 4 years old, passed away on Friday, March 30th, in the arms of his parents at CHOP Specialty Care Clinic in King of Prussia.

Trevor bravely fought against neuroblastoma, a pediatric cancer, and inspired everyone with his energy and spirit.

Trevor is the beloved son of Chris and Jackie (McFeeley) Gresko, and the valiant older brother of Tabitha, age 2. Other special loved ones include grandparents Rick and Susan (Lawler) Sheetz, Donald and Janice (Eltringham) Gresko, Patrick and Jeanne(Zearfoss) McFeeley, a large loving extended family, and many friends.

Trevor's main occupation was collecting toys. He was also an avid pirate, bug wrangler,paleontologist,as well as a tiger-lion-gator-power-ranger. Trevor enjoyed countless hours cruising with Tabby in his go-cart,blasting Buzz in Disney, and defeating boss monsters in video games.

We will carry him in our hearts always.

Family, friends, and those touched by Trevor's life may call from 3PM to 6PM on Wednesday, April 4th, at the Robeson Lutheran Church, 3520 Plow Road (Rt. 10 and Plow Road) Mohnton, PA 19540. A memorial service will follow directly at 6PM with Rev. Susan F. Fox officiating.

Arrangements are by Henninger Funeral Home, 229 North 5th Street, Reading, PA 19601-3303.

In lieu of flowers, the family requests donations in memeory of Trevor Gresko be sent to Alex's Lemonade Stand Foundation, 333 Lancaster Ave. #414, Wynnewood, PA 19096,
www.alexslemonade.org

Friday, March 30, 2007 9:04 PM CDT

On Friday, March 30th 2007 At 4:30pm Trevor bravely lost his battle to neuroblastoma. He passed away peacefully in the arms of his mother and father. He was surrounded only by love.

Sunday, March 25, 2007 8:02 PM CDT

Another busy week.

Monday we went to clinic. Trevors Hemiglobin was 8.5 his platletes were 33. His white count has made a full recovery so his Anc is good and high. We decided to not transfuse and check again on wed. and see if they would come up.

Tuesday morning we had a huge suprise though as Trevors nose sprung a leak. Lots of blood and I freaked. I started making frantic calls as Tabby was still in bed. Mom mom came very fast to sit with Tabby and Trevors Uncle Jim drove Trevor and I very quickly to Kop. Trevor got both blood and platletes and then platletes again on friday. Oh and a visit from the home nurse thursday. It was busy!

Overall Trevor has felt pretty rotten. Not really in pain but more issues with his eyes and still not walking more than a few steps a day. His breathing has also become a bit more labored. It has been rough. It is very difficult to see him go through this.

Tabby is on her second vacation at her nanny and pop pops of the month. It became to difficult to try and balance everything. I think it was that or maybe just a nervous breakdown:) Anyway we are looking into placing her into a day care program so she can play and scream and just be a 2 year old and so Trevor can rest a little easier and of course so i can just get a moment to breath.

Today was ok though. We played video games and made it outside to dig up a treasure. He only lasted about 5 minutes outside and then wanted to rest, He took a nap and now its back to eating and video games.

Please continue to pray for Trevor.
We head to clinic tuesday and i will try to update after that.

Love Jackie

Sunday, March 18, 2007 12:07 AM CDT

I let to to much time get between my last update and now im not sure where to start.

Trevor was feeling much better since getting chemo. Not great but better. Last sunday he started having some pain so went up on the dilaudid and that did the trick. Tuesday we met with Dr. Grupp hoping to get more chemo. Trevors counts were recovering from the stem cells but his red count and platletes had not caught up yet. We were told we could do the chemo but it may ruin the effect that the stem cells would have and make him transfusion dependent. At that point things still seemed ok and we felt comfortable waiting until friday. Friday came and his counts were still low but Trevors issues with his eyes, walking (or lack there of), and falling were becoming much more concerning. We had to make the desision to give the chemo and possiably ruin the stem cells or not and have Trevor progress further possibly losing his vision which is my greatest fear.

After plenty of tears and frustration i went with the chemo (a low dose but will hopefully keep him comfortable and giggling like he has been).

Today Trevor is happy and eating like mad. So far he has had a doughnut, gold fish, 2 herseys bars, seasoned rice, and 5 peices of buttered toast and we are just begining. He has gained a massive amount of weight from the steriods but i just tell him he is a muscle man:}

We head to Kop tommarow for counts and possible (but hopefully not) blood and platletes. I was hoping that we would only have to go in 1 time a week by now but i dont think thats likely. He really doesnt like to go and it is heartbreaking every time i tell him that we have to go. We also have home nursing coming once a week which can be slightly overwhelming for him.

Also i had ment to let everyone know that Trevor did get his Dragons after many days of staring out the window and he enjoyed them but now seems to be onto new things. I guess thats how it always is:}

Thank you to everyone who checks in and signs the guest book it means so much to us.
Please continue to pray for Trevor especially his vision and comfort.

P.S. Congrats to Jillian, Ruby, and Michael who all had great scan results!

Love Jackie

Saturday, March 10, 2007 2:42 PM CST

Happy Birthday Tabby!

Tabby is 2 years old today! She returned this morning after spending the week at her nanny an pop pops house which gave Trevor and i a nice chance to rest and play video games. The birthday girl came home wearing a beautiful party dress and she got to open up lots of presents that her big brother picked out for her. He is a really good little shopper. No big parties though because Trevors anc was a mere 6 on friday.

Trevor seems to feel pretty good. I think the chemo really helped with his eyes and pain issues. He is still limping and his head is still unfortunatly pretty bumpy. He can not recieve more chemo until his stem cells engraft and even so it will have to be given in a much lower dose than last time. It is just to hard to think about all of it and i am just so thrilled that today has been another good day.

After the birthday princess took a nap I took Trevor on a wagon ride. I think it was good for both of us scince we havent got out much. He was smiling the whole time. I hope the nice weather sticks around so we can spend more time outside.

Trevor has still been getting platlete transfusions 2 times a week. His stem cells should start to spring into action next week sometime but even then platletes take the longest to recover so it may be a few more weeks. He is being a trooper although he dreads going to clinic and he hates his nightly shots. I dont blame him one bit.

He continues to crack us up all the time with his goofy remarks or his funny faces. He is such a little sweetie.

Thanks for checking in!
Please continue to pray for Trevor!

Love Jackie

Wednesday, February 28, 2007 6:26 PM CST

I need to make this a quick update because i have just been very busy. Trevor is eating almost constantly from the steriods and weighing in at 31.5 pounds and gaining more by the minute.

Trevors counts have fallen to nothing from the mibg therapy and we have been getting lots of transfsions. Because of increasing vision and pain issues he recieved doxirubicon yesterday. Because he is having a stem cell rescue tommarow he was able to get a 3 week dosing.

We are trying to get a hold of a drug but it has not yet been used in humans (only cell lines) for cancer. Dr. Grupp is interested yet he is hesitant because it puts his neck on the line. He does agree though that it looks very intersting.

For the most part Trevors doing good. He was giggling like crazy today while watching tom & jerry (I mean all out belly laughs).
He is playing a video game right now and has been not so patiently awaiting the delivery of some toys he ordered online. As soon as we ordered them he thought they would show up within the hour. Lets just say there have been many tears waiting for his dragons to arrive.

Please pray for Trevors vision and comfort as it is so heartbreaking to watch him struggle to focus on something.
He is really my little hero and i am so proud of him.

Love Jackie

Thursday, February 22, 2007 1:43 PM CST

Trevor is still feeling well besides a few aches and pains from time to time.

He is eating like crazy from the steriods. He is on his second birthday cake of the week and has been going thru a 2 pound jar of peanutbutter every week as well. He is getting very chubby but i think it is absolutly adorable.

As far as the pain goes he has been having some knee pain and he has fallen down a few times which could be head related or leg related (i dont know).
Although i try not to look i cant help but notice the bumps on his head looking a bit larger.

We have been playing lots of video games and making clay animals. His spirits are great so who am i to put a damper on things. I refuse to sit around crying and sulking wasting our precious time together. I am all to aware of the fact i may have the rest of my life to greive so we are keeping the tears to a minimum.

Last friday we saw Dr. Grupp. Trevors counts looked ok some look like there coming up while others are just bouncing all over the place (from the mibg therapy). Anyway they looked to good for stem cells so we headed home after a short visit and with alot to think about.

Trevors options are few and some just seem that they may not be right for a child who dreads the clinic.
We headed to the king of prussia clinic for counts on tuesday where i learned his platletes were 3 (yikes) He recieved a transfusion and he will be getting platletes tomarrow as well.

I am waiting for Dr. Grupp to decide if we will go ahead with the stem cells or not.

Well i better get back to my video game Trevor wants a new gadget that costs 1,000,000.00 and it may take me a whole week to earn that kind of dough. I wonder if he would care if i just used a cheat code?

Thank you for your prayers and support.
I will try to update sooner next time.

Love Jackie

Tuesday, February 13, 2007 2:48 PM CST

I know i owe everybody an update and scince Trevor is napping i have a moment.

We came home last thursday and met with hospice. They were supposed to come over with all of Trevors meds. Well not to bash on the pact team again but im not sure if they really know what they are doing. Maybe they get away with it because everyone involved is to tired to complain. I dont know?

So of course no meds. The pact team knew Trevor was still getting platlete transfusions and he was on steriods to reduce swelling and pressure but hospice says that these are (life saving attempts) I could only wish in my wildest dreams either of these had anything to do with curing neuroblastoma. Anyway although hospice is still coming to the house he is currently on the pallitive care program. It pretty much means we have to get prescriptions and some other things ourself.

Last friday we headed to king of prussia clinic for platletes. And we also went today for platletes. His platletes were 59 today and they usually do not transfuse until you drop to 20 but all parties involved agree that Trevor should be spending more time at home than at the doctors. Trevors other counts seem to be on the rebound. I am waiting for Dr. Grupp to call me back tonight and we are going to decide if we should give Trevor back a batch of stem cells or not. This would make it more possible to stay home without the constant appointments.

Trevor is feeling ok. We have the pain under control. We have not explained to Trevor what is going on. We just tell him that he will feel all better soon and no more shots, no more doctors. We still talk about everything we are going to do when the weather gets nice Like ride his go kart, play on his pirate ship, go sledding (we only sled in the summer, its way more fun).

I feel like he knows things that i dont. He tells us how he likes to be 4 and he never wants to get bigger. I try not to let him see me cry but it is hard.

Trevors spirit isnt broken but i think its hard for him to understand why his little body is letting him down. Oh I love him so much. His poor little head is getting bumpy and i think he is starting to limp. Im sorry its just to hard to talk about.

I will try to keep everyone updated as i can.

Thank you for signing the guestbook and Praying for Trevor.

Love Jackie

Thursday, February 8, 2007 10:02 AM CST

We are going home shortly.

Trevors feeling well. Unfortunatly there really is no good news. Hospice is involved and we are just heartbroken.

I will update when i can although i plan on spending most of my time playing with the kids.

Please continue to Pray.

Love Jackie

Tuesday, February 6, 2007 7:03 PM CST

Today was another rough one.

After increasing his dilaudid Trevor is feeling much better besides the fact he is a little drunk and crabby.

The ct scan remained unchanged which is good but also bad. We would have like to have seen at least a slight improvement. The doctors restarted steriods with the thought that swelling in his head could be causing the pain and nausia.

Anyway things are obviously not good and to be honest i really dont feel much up to breaking down the details. The goal is to get Trevor home (when we are all ready) and keep him comfortable and hopefully enjoy lots of time together.

By the way yesterday marked 2 years since diagnosis.
Trevor also got to meet Miss America yesterday and although i would hate for her to know this but he wasnt very thrilled. I think Sponge bob would have done the trick.

Keep Praying for better days!

Love Jackie

Monday, February 5, 2007 6:18 PM CST

Trevors had a rough day.

He is kind of in a corner as far as pain meds go. The fentynol patch and long lasting morphine pill that would be great to go home on are univalible to him because the smallest dose either comes in is 3 times the amount he needs and the doctors told me they would almost instintly stop his heart.

We are currently trying dilaudid by mouth every 4 hours but with the associated nausea and and the constintly bugging him with meds may prove to be to much. If this is to rough his only option will be iv meds which would mean being hooked up at home. So we are hoping we can keep the pain under control with out iv meds.

Anyway he had a ct scan and prelimany results are nothing new is going on. I perfer to hear the results from Dr. Grupp. He should be by tommarrow.

Trevor just woke up and wants to play a video game so i gotta go.

Love Jackie

Monday, February 5, 2007 10:17 AM CST

Quick Update

I just wanted to let everyone know we came back to chop last night via ER. Nothing really new happening. Trevors pain had been under control when we were in last but when they stopped the dilaudid he became uncomfortable. We went home on oxicodine only. We thought it was not a great idea but thought it just needed some fine tunning as far as dosing and how far apart we would give it.

Well needless to say the pain stayed and the oxicodone was also upsetting his stomach.

There was much confusion with the pact team. They were supposed to deliver a new drug to our home but somehow that system failed Trevor. Anyway a few choice words later I called oncology again knowing they have always taken care of Trevor and we we came.

He is now sleeping peacefully after a late night of playing video games.

I will update later

Love Jackie

Thursday, February 1, 2007 10:21 AM CST

We are going home!!!!!

Yesterday was a little rough. It seems we stopped his pain meds a little bit earlier than we should have. The Doctors say the radiation can cause some swelling and cause some discomfort.

The radiation docs said that they are very pleased with how things went. They said they got alot more than they had even hoped for. They had hoped to lessen the pain but were suprised to see his eye get so much better. We will take any good news we can get.

Anyway his spirits are good today and he seems happy and comfy. Im sure the news of going home helped lift his spirit.

He needs to start Gmcsf shots today because his anc dropped from the mibg treatment. We were not sure if we would make him get the shots but everyone feels it is in his best interest until we figure out exactly what is going on with his disease. He is also going to get platletes before we head out, this way we will not need to return to clinic until tuesday.

Trevor cant wait to get home and tell Tabby that he ate a hamburger. Trevor thought it was sausage and he thinks sausage isnt meat but a hamburger is. He also thinks chicken nuggets and hotdogs are not meat. He was shocked that i tricked him into eating meat. He also wants to tell her that a hot dog is a pig but he is still not sure he believes that one himself.
I think after how strange our conversations have gotten it is really time for us to get out of this room!

Thank you all again for your love, support, and Prayers!

Next update will be from Home sweet Home!!!

Love Jackie

Monday, January 29, 2007 3:48 PM CST

Hello Everyone,

I want to thank Jen so much for keeping everyone updated. It was just simply to hard for me to do under the circumstances.

Things have been steadily improving from the radiation. Today Trevor has been up and out of bed playing all day.
It feels so good to see him giggling again. Last week i was almost certain that we would never have a chance to see him run and dance again. It has been pretty heartbreaking.

The Docs are still pretty uncertain what the future holds for Trevor. When we arrived all conversations were pretty grim. It is still to soon to know if the mibg will help and because of that they would like us to keep an open mind to doing the 2nd treatment. I really cant wrap my mind around any of that for now so we are just taking it one day at a time.

Trevors eye looks much better but we are almost certain he has lost much of the vision in that eye and the Doctors agree. It breaks my heart and yet somehow he hasnt missed a beat.

Trevor finished his steriods yesterday. They were a large part of his moods. Nobody could talk in the room AT ALL! It did make us laugh though because it felt as if we were under attack. Today it is lights on, curtains open, and lots of talking.

I cant thank everyone enough for signing the guestbook, Praying for Trevor, and of course the blue cotton candy. He is eating it as i type. He says yummmm just like the kind at the zoo.

We will continue with the radiation thru thursday. We will be meeting with the pac team. They are a team who works in conjuction with your doctor to help provide everything we need at home to focus on quality of life. It doesnt close any doors for Trevor in the treatment department. The main goal will be to utilize as much home care as possible so Trevor can spend less time going back and forth to the Doctors and or hospital. Trevor has expressed just how much he hates being here and i feel we need to do our best possible to keep him where he is happiest.

Yesterday Dr. Maris decided Trevor should have a day pass to lift his spirts. We went over to my dads to visit. Tabby was there and it was so nice to get to see the two of them together in a more normal setting. Trevor was tired but he was able to make a quick trip to toys r us. Him and Tabby loaded up on toys and video games. Even when hes worn out he is still a great shopper.

So for now we will try and focus our attention on the positve, really what else can you do. I just feel bleesed to have a day like today.

Thank you all for your continued support!

Love Jackie

Saturday, January 27, 2007 4:50 PM CST

Hi everyone. Jen here again. I talked with Jackie today and everything is pretty much the same as before. Trevor's eye is 100% again. Thank God! Jackie and Chris are trying to keep in good spirits, but Trevor is having a hard time. He is definitly not happy to be at CHOP. The nurses and Dr.'s have noticed it also. So, to give Trevor a break, the Dr.'s are giving Trevor a 6 hour pass tomorrow to leave the hospital. They are planning on spending some much needed time with Tabby. I really think that this will do Trevor a lot of good.

Jackie and Chris have had a lot of visitors, so they thank them for their support. Unfortunately, Trevor has not been the most gracious host. He really is in a slump and just not happy to have visitors. Hopefully he will snap out of it soon...I need to see that cutie too!

Oh yeah, thank you to everyone who sent Trevor blue cotton candy. He is sooooooooo good to go for a sugar high! Enjoy Trevor, you deserve it!!!!!! But, I would appreciate it if you saved just a little for me! Well, I promise to write again soon when I get more information.

Thank you again to everyone!

Wednesday, January 24, 2007 5:44 PM CST

Hi everyone. Jen here again. I just spoke with Jackie on the phone and it seems as though I misunderstood some of the information. Jackie was crying so much it was hard to understand her...sorry everyone!!!!! O.K., so radiation told Jackie and Chris that he had it covering his brain, but "brain" to radiation and oncology are 2 different things. He has the Cancer on his skull and it is growing down towards his brain. No fluid was on the brain either.

Now that we have that straight! Trevor did radiation again this morning and by this afternoon he seemed more like himself. He was yelling at Jackie and Chris today - yeah! Jackie and Chris spoke with Dr. Grupp today and everyone is in agreement that if after these 8 days of radiation and if the MIBG treatment does not look like it worked, they will not continue with treatment. They just love Trevor too much to put him through anymore. No one can really give them a good answer as to what is going on with Trevor. At this point they are not sure if he will eventualy respond to this radiation or not. But, the overall goal is to get him feeling well enough that he can go home and be comfortable. So for a definite, they will be at CHOP for the 8 days of radiation. After that, it's basically up in the air right now.

Jackie seemed better on the phone today because Trevor was acting more like himself. So, not too much to report on. Keep the prayers coming!!!

Oh yeah, I almost forgot the most important thing...Trevor is requesting blue cotton candy. Anyone who is reading and is within driving distance (you know who you are), can you fill that request?

Until later...

Jen

Tuesday, January 23, 2007 6:41 PM CST

Hi everyone, this is Jen again. It is with an extremely heavy heart and about a million tears running down my face that I have to deliver this news. After the Gresko family came home Jackie and Chris noticed that Trevor seemed to be having problems with his eye. It was swollen and he didn't really seem like he was seeing very well out of it (turning his entire head to look). They spoke with Dr. Grupp yesterday and he was trying to schedule an MRI for sometime today. But, Trevor seemed to get worse as the night went on and they headed back to CHOP through the ER. They did a CAT scan and it revealed that Trevor's brain was covered by the Cancer. He also had fluid on the brain which was probably causing the pressure on his eyes and definitly was the cause of his headaches.

Trevor was admitted and started full brain radiation today at HUP. At this time, he is scheduled to receive 8 days of radiation. They are basically just hoping to relieve the pressure to make him more comfortable. A sit down talk with the Dr. has not happened yet, but Jackie and Chris fully understand what is going on. Nothing really has to be said. As you can imagine, Jackie and Chris are heartbroken. Jackie couldn't even talk to me on the phone anymore because she didn't even want to speak the words. She just wanted to cry.

So, again we need to send up those extra prayers that Trevor is comfortable and hopefully his miracle is right around the corner.

Gresko family, I know I speak for everyone who reads the page by saying "we are so sorry for the news you have received today and we all pray that tomorrow will be a better day".

With a sad heart...

Jen

Monday, January 22, 2007 6:31 PM CST

Hi everyone. This is Jen, Jillian's mommy. Jackie asked me to update the site because her computer is in the shop being fixed. Jackie has a lot of precious pictures saved on her computer so she is hoping that she gets it back in one piece with all of the data intact. Trevor is home from his MIBG treatment at Hotel CHOP. They arrived at CHOP on Thursday, but didn't get up to the room until late that evening. Everything went as good as could be expected. Jackie describes the whole experience as "scary". When I talked with her today, she sounded like she was very tired and could sure use a good nights sleep. For anyone who is not familiar with the MIBG room, to look at it from the outside is pretty scary. When a child is in treatment in the room, everything, and I mean EVERYTHING, is covered with plastic and taped down. Only one person is able to be in the room with the patient at one time. So, Jackie and Chris alternated as much as possible. Jackie and Chris were not able to use the bathroom or shower in the room, so they had to travel elsewhere in the hospital for a shower. They had to be completely gowned up in the room. They were advised to try to not touch Trevor at all, including snuggling at night and the great kisses.

From what it sounds like, Trevor was a champ during the treatment. He did vomit a few times, but that was to be expected from the meds he received and just the treatment itself. According to the Dr.'s the worst is yet to come. Once the radiation starts to truly attack and kill the cancer cells, he will probably start feeling really bad. Trevor had some headaches, but slept through most of the treatment. They had him on a pain med which knocked him out for the most part. The radiation levels in the room were monitored at all times. Trevor, Jackie and Chris had to take radiation level readings of themselves all throughout the weekend. If they reached levels that were too high, they would not be able to continue to stay in the room with him. All of their levels were under control the entire time. No problems there! After they were released on Sunday, they had to stay in Philadelphia for 24 hours. They headed over to the Sheraton in Philly and then headed home today.

Jackie not only described the experience as scary, but also lonely. You are basically in this crazy room with radiation floating around all the time. The nurses and Dr.'s come in very rarely due to the radiation in the room. Jackie said by far this was the scariest treatment Trevor has had to endure. What a trooper though!

Get ready for the really, really weird part...when a child has a scan you do not want to see anything light up. All the spots that light up are cancer. After Trevor was finished the treatment, he had his scan. Now forget everything you learned, but this time you want to see everything light up. By everything lighting up, this means that the radiation is attaching to the cells. The brighter the better in this case!!! Trevor was well lite. We can only pray now that this does its job. Trevor will receive another scan in 6 weeks and then no matter if he is clean or not, he will do the MIBG radiation treatment again, just for that "make sure" factor.

So, I ask everyone to join my family in praying for Trevor. This is it everyone!!! This needs to work for this little boy. He's such a fighter, but the prayers can't hurt! I told Jackie I would call her this week, so depending on if her computer if fixed or not, you may hear from me again soon.

Until later...

Jen on behalf of the Gresko family!

Tuesday, January 16, 2007 1:26 PM CST

Well we are home. Disney was great. Trevor really had a blast. He was not scared of anything. He loved Big Thunder Mountain and Buzz lightyears Space Ranger Spin. He also liked Soarin and Test Track.

On the way there 2 kind airport attendants bumped us to first class. Tabby even had her own seat and she slept the whole way down. It must have been difficult for the kids to adjust to coach on the way home because they were a handful and Tabby was angry she had to sit on our laps because she yelled "I sit" nearly the whole way home LOL!

It was hard leaving Disney knowing that once you arrive home there is a difficut treatment waiting for you.

So Friday before we left Dr. Grupp called and said that some things had changed and we had to go over our desisions again. When we chose the low dose mibg treatment we did so thinking there was a 6 to 8 week wait for the high dose and we would have had to risk another round of the chemo (that is not doing what we would like it to).
It turns out there is an opening for the high dose treatment on the 19th (this friday). Dr. Grupp and Dr. Maris both feel like it is the best choice and Chris and i agree. We will be admitted thursday. Only one of us can be in the room at a time. We cannot shower, Pee, eat, or drink in the room so we will be taking turns throughout the day. We will be there until at least monday. For Trevor it means Bone marrow aspirates and biopsies, a foley cathiter, and spending all of his time in bed behind lead sheilds. Hopefully it just means a lot of bordom and not to much trama.

The radiation will be injected on friday and when he reaches a safe level he will be discharged.

I wish i could go into further detail of explaining this treatment but i wouldnt even know where to start. I can only say it is a targeted radiation specific to neuroblastoma with a laundry list of precautions.

Trevor feels great. He looks great. He has even put on a few pounds. Right now he is running around sometimes he has his pants up and other times he is running around with his little butt hanging out. Im not sure why but it is making him giggle.

I will makesure to update during treatment and let everyone know how its going. Please say lots of prayers for it to be a success.

P.S. To Dawn who writes to Trevor. Trevor went to the pirate dinner theater in Disney. He was swinging his soda back and forth singing and at one point he couldnt find his soda and yelled "Wheres my beer" He denies saying this now because he got embarrased. He made a fine Pirate!

Thanks Everyone for Checking in!

Love Jackie

Thursday, January 4, 2007 7:04 PM CST

Well alot has happened since my last update.

First huge thing is that Trevor is now a big 4 year old! Trevor said "Its almost like im 5 now"! Thank you everyone who dropped him a note or sent a card!

New years eve was very quiet! I got some fireworks and the kids were really excited. We pulled up seats to window and Chris went outside to put on a show. It turns out they were not fireworks at all but just poppers. Tabby clapped and enjoyed it but Trevor knew it was a bust.

Tuesday Trevor had an appointment with Dr. Grupp. Mom mom and Tabby came along. Sometimes it helps to have a shoulder to lean on. I recently found out that mibg therapy was back up and running. It was closed for a bit as a new supplier began making the drug and it had to go through all the federal approval junk. Anyway it wasnt available after Trevors last scan so we had to stay the course on this Chemo.

I am not even going to begin to define what mibg therapy is because it is difficult to explain but it is a type of radiation. Anyway there are 2 ways it can be done. The first is high dose which requires a led lined isolation room with everything covered in plastic, a wee wee cathiter (ouch) and almost always a stem cell rescue to follow. Chop has been doing it this way for a while. Trevor has 3 bags of stem cells frozen and locked up tight. We really lucked out that he had such a high yeild of stem cell when he had pheresis back in the begining of 2005. Because he has so many stem cells he could do high dose mibg 3 times as long as it worked.

The second way is a low dose that can be done out paitent. It can be repeated many times. Holland and canada have been doing it this way for some time and have had good results. Trevor would still be able to do the high dose therapy after doing the low dose. Dr. Grupp agreed that this would be a good way to go especially because we could not get into the high dose for about 6 to 8 weeks.

Anyway the choice was made to do the low dose. There is not expected to be as big of a response as you would see with the high dose but we feel it is better than sticking with the chemo.

Well we are ready for Disney. The trip was a christmas present from nanny and pop pop. The kids also recieved many cards with spending money (thank you) Trevors already thinking of all the things he wants. He wants to get Tabby a pink power ranger!
I feel a little spoiled telling everyone this detail but ill go ahead anyway. Nanny and pop pop will be arriving here friday morning and picking up our van and luggage and driving all the way down to florida so we dont have to wrestle with luggage and the kids at the airport. They will meet us in orland on saturday to pick us up at the airport. I keep teasing them that it would make it even easier on Chris and i if they would take the kids too. LOL!

So for now we will focus on all of the positives. We have hope for the new treatment to be a success. We are thrilled that Trevor feels well and we are gratful to have such wonderful friends and family we can turn to for support.

Love Jackie (and Tabby who has sat very inpatiently on my lap while i updated)

P.S. Happy New Year!

Friday, December 29, 2006 10:37 AM CST

Good news!

We were sent home! Wed evening Trevors temp went from 104 to 103 and then finally the fever broke. Typically you need to stay in for at least 24 hours after your last fever but they said they wanted him out. There is much more risk for him at the hospital than at home (so many virisus going around). I was a little uncomfortable with leaving at first but i agree it was for the best.

It was a very very scarey stay. I never would have imagined how ill a common cold could make Trevor. We are so greatful to be home. Thank you all for your Prayers!

Trevors hemiglobin and platletes were still low but he will have blood work on tuesday along with an appointment with Dr. Grupp.

Tommarow we are going to celebrate Trevors birthday quietly. He will of course get a present but we arent going to over due it as he hasnt even had a chance to check out his many Christmas presents. We will plan a celebration when we return from Disney.


Thank you all for your prayers and for checking in!

Love The Greskos

Wednesday, December 27, 2006 9:38 PM CST

Things have settled down so i have a minute to update.

Trevor began getting sniffles and a low grade fever on Christmas eve. It seemed to pass and the cold remained. Christmas morning he had his second low grade and then it went down again he still felt pretty terrible. Late afternoon he shoot up pretty high, Im not really sure what his temp was because as soon as it hit fever point i called the fellow and headed down. Chris stayed back with Tabby and my dad meet me hear because Tabby is also sick.

In the ER we found out his platletes were 11 (not good but expected). Nothing else really exciting happened and we got to the floor around 1:30 in the morning.

Throughout the night Trevors temperture rose. They decided to hold off on platletes until the morning and he was started on antibiotics. They also ran several tests on his boggers for virisus and did blood cultures.

His temp was very high yesterday and even higher throughout the night it was rough. I belive he hit a high of 104.7 and hit 104 many times. He is taking tylenol and lying on a cooling blanket but thats really about all they could do. Trevor cant have motrin because of his platletes.

Today we found him swollen and covered in peticia (sp) Tiny red dots you get when your platletes are low. They repeated his blood counts today to keep a close eye on things and everything is looking good. His anc really jumped high and super fast (yeah)! It was over 5000 so he did not need his nightly shot. All blood cultures are negative for infection they could not pin point a specific virus but all the docs feel very strongly that it is just a virus and his body reacted this way due to his tired marrow and low counts.

Today my dad left and Chris's mom came to fill in. Chris wond up catching the sickness and it is to dangerous for him to be here. I know it is breaking his heart that he cant be here.

Trevor latest temps have been ok. He held steady around 101 and went about 7 hours with no tylenol. The last temp was 103 but we are taking that as good news.

He woke up alittle bit ago for the first time today and is even playing video games and yelling at me and his mom mom LOL. Its good to have him back! We are hoping things continue to improve. It looks like we will be stuck here for a bit probably even on his birthday (rats)!

I will update again tommarow.

Thanks for checking in!

P.S. Dad i hope you get a good nights rest! You deserve it!
(we didnt get a like of sleep)

P.S.S. We miss you Tabby and Chris!

Love Jackie

Tuesday, December 26, 2006 6:09 PM CST

Hi everyone. This is Jen (Jillian's mommy) writing on behalf of Jackie. Trevor is at Hotel CHOP right now and Jackie just wanted to focus her attention on Trevor. On Christmas Eve Trevor started to have some low grade fevers, they would go up and down but would not get high enough to warrant a call to the Oncologist. On Christmas day Trevor hit a big one and Jackie had to place that call. They headed to CHOP and were admitted. Trevor's fever has continued to rise throught the day. He hit 104 this afternoon. They increased his tylenol to the max and it did bring it down to 101.

They took blood cultures and nothing has grown out. They took several tests for different viruses and nothing has shown up. You almost want them to find something so they can start treating the problem. Trevor needed platelets today. He had a nose bleed that just would not stop. He really didn't even wake up and start acting like himself until late this afternoon.

Right now his ANC is in the dumper, so the Gresko family is pretty much stuck at CHOP for awhile. They will have to wait until his ANC comes up and he has 24 hours without a fever.

Please keep Trevor in your prayers and thank you for checking in.

Love ya!

Tuesday, December 19, 2006 2:16 PM CST

I didnt mean to go so long without filling everybody in but in someways i think i needed it.

Trevor continues to feel good. He recieived his third round of this chemo combo last monday and tuesday and this time he recieved the vincristine again but at only 50% dosing due to the terrible side effects he had the first time. There was a bump or two on the back of his head that had me worried but i belive they are gone now and i was never certain that it was disease or just a bump to begin with but my suspisions where pointing to disease.

We have been going to the king of prussia clinic every other day which is getting on Trevors last nerve but he is a tropper. He has been doing pretty good at getting his shots this round although it completly breaks our hearts. At least once a day he will stop playing and come over to me with his lip quivering and ask if he needs another shot. It doesnt help much when i tell him that he still has a few hours before he has to get it.

Now some exciting news. Santa came a little early to our house with a few presents that would be much to heavy to carry in his sleigh on Christmas eve. Trevor has been asking for a race car for a while and Santa came through! Trevor now is the proud owner of a really cool Go cart! It came with many saftey features so he cant hurt himself. Luckily the weather has been nice so he could spend some time on it. There are two seats so Tabby can ride along and She loves it. Our front yard is getting pretty riped apart but Chris and i are totally ok with that.

We also had a vist from Santa him self on sunday evening. Trevor made sure to say thank you and also filled him in on what else he has been wanting. Tabby was a little shy and wouldnt sit for a picture but wasnt scared. Thank you Santa!

So all in all we are hanging in there. It just takes time to stand back up after being knocked down.

We are also getting ready for Disney. We leave on Jan 6th!
We are excited!

Love the Greskos

Wednesday, December 6, 2006 7:07 PM CST

I dont know how to start.

From a clinical stand point Dr. Grupp feels Trevor responded to the chemo. He said his eye would not have gotten better on its own and there is absoulutly no other explanation for it. But that is where the good news ends. Although we did not get terrible news it is not what we hoped for. The scan looks the same as It looked last time it doesnt look better or worse. Oh God how i feel like filling this page with terrible words right now but i wont. Some people would consider stable disease good news and i am greatful the the chemo is holding the beast as bay but i am scared. Dr Grupp says if he he was not responding that the cancer would have already taken over his body like wild fire and we should stay on this chemo for another round or two and then rescan.

I am just so heartbroken and i cant understand this at all. I am trying to keep my faith but i cant help but question why the hell something like this would be happening to a sweet little child who is so sweet and happy that just 5 minutes ago while he was sound asleep started having a funny dream and was cracking up in his sleep.

I will apologize in advance if i dont update for abit because i need sometime to just take my mind off of things. We are going to start celebrating Christmas this weekend and will continue doing so as long as we please. We are also planning a trip to disney the end of december or early january.

Please Pray for Trevor.


Love Jackie

Sunday, December 3, 2006 4:51 PM CST

I feel like i should apoligize again for being so slow with updates. Although we have been very busy i think the real reason why i dont post as much as i used to is just because its hard. I try to distance myself from neuroblastoma as much as possible, that probably sounds strange but the less i go on the computer the less i sit around having anxiety attacks over the statistics or our little friends who are not doing well or even more because of all the little friends we have lost.

On the note of being late at things I want to wish our sweet little Jillian a (late) but Happy 3rd Birthday. I guess i am not the best mother in law to be but i'll work harder. We love you and are so proud of you!

Trevor is doing great. Aside from the fact he is almost distirbingly addicted to video games. He is pretty good at them though and i am not great at telling him he cant do what he wants. Trevor will get his hopefully get his final gmcsf shot tonight for this round. We will go to kop tuesday for the mibg injection and blood work and then to Chop on wed. for his scan and hopefully meet with Dr. Grupp.

So of course our anxiety is high because of the importance of the scan. I look at his eye (which is all better) and i cant imagine how we couldnt get good news but with all the bad news we have been getting i am still very scared and i mean horrified. Thank God i have been blessed with 2 sweet children whos smiles get me through days like this.

Please send all the Prayers you can muster up For Trevors scan on Wed. Please Pray for it to show improvement or even better to be clear.
I will post as soon as i know anything. There may be a chance i will not get the results until the following day.

Thank you all who hold Trevor in your Prayers and thank you for being patient with me as well!

Love Jackie

P.S. If there is underlining I didnt do it!

Monday, November 27, 2006 6:47 PM CST

I hope everyones Thanksgiving was as nice as ours was. Trevor is not a big meateater (although he has a fish named that) but he did have about 4 bites of turkey and then declared that "that was some pretty good chicken"!

Trevors anc over the past week was holding steady in the 600's. I was hoping that we would never hit zero and soar into the range that we could stop the shot but today his anc was in the 300's. Hopefully we are moving in the right direction. So far Trevor has only needed blood and platletes once this round and hopefully it stays that way.

Today after returning from clinic i got a phone call from Chop. It turns out the manufacturer of the isotope (injection for mibg scan) Had a power failure and they cannot inject the children this week for saftey concerns. So this means the scan is on hold until next week. He will be injected next tuesday and scanned next wed.
I was a little bummed because i have been trying to mentally prepare for this but i dont think that is possible anyway. Scans are just so stressful.

Trevor really feels great though. He is a very happy little guy. Today after clinic we went over to the mall while mom mom Gresko held down the fort with Tabby (Thank You)! Trevor picked out some really cool shoes. After his bath i put him in his pjs and he said UHHH I want my shoes on! He looks pretty silly running around because his pjs show off just how skinny his little legs really are and it makes his feet look huge!

Please continue to pray for Trevors scans to show improvement!

I will try to update more often. It has just been busy with the holidays coming!

Love Jackie

Monday, November 20, 2006 6:59 PM CST

Today Trevor had a clinic appointment and his counts still looked pretty good meaning no transfusions yet. We will return on wed. and i am pretty sure he will need platletes and maybe blood (you never know)!

The next 2 weeks are very busy for Trevor. Tabby headed to nanny and pop pops for the week. I will be very sad to not have her on Thanksgiving but I am sure she will have tons of fun and attention. Trevors counts will be in the bucket by Thursday so we are just gonna lay low and enjoy some turkey and i am sure we will fit in a few video games.

My children, Chris and I have been so bleesed to have 3 sets of wonderful granparents to help us out through this. I really dont know what we would do without any of them. Tabby is at an age where it is just to hard to bring her along for appointments so i am so grateful that they have all been there to watch her. It allows Trevor to get full attention when he needs it the most and allows Tabby to stay home and play instead of being stuck in a stroller and carted around. She hates strollers!

We started putting up our Christmas lights. Dont tell Chris that i said "we started" He thinks there are plenty! We have blown a couple fuses but i am pretty sure we could figure out a way to put up some more. I think me and Trevors secret mission of the week will be to see how many more lights we can hang while Daddy is at work!

Trevor has made his list for Santa and he is getting excited! He has also reminded me many times that his birthday is right after Christmas to. Like i could ever forget. He says he wants a dinosaur, monster, power ranger, monster truck birthday party! What a nut but i guess we will just have to see what we can do about it.

Today after Clinic I finally convinced Trevor to stop at home depot so he could pick Daddy out a Christmas present. He kept insisting that he already got Daddy a present. He said I got him a snow blower already! Now we do not have a snow blower and i am positive Trevor has not made any secret trips to home depot and on top of that Chris uses a plow so he has no need for a snow blower. Sometimes i have no idea where the boy comes up with his crazy stories but the certainly make me laugh.

Anyway Trevor is no good at keeping secrets so i was so scared he would tell daddy what he got him as soon as he came home from work but the present he picked out has a strange name and he cant remember what it is called! On the way home he sat in the back just repeating it over and over again so he wouldnt forget but after a quick nap he forgot it. He is also not happy with me that i wont remind him.

Well i am not sure if i will get a chance to update before Thanksgiving so i hope everyone has a great turkey day!

Also Trevor will have his mibg scan next wed. the 29th so start sending prayers his way for good results!

P.S. Jen I waited for your call all weekend!


Love Jackie

Monday, November 13, 2006 7:39 PM CST

I didnt mean to go so long without giving an update.

Last monday when we headed to clinic we found out Trevors counts were finally high enough to stop the shot! They wanted to give Trevor a little more time off to fully recover before starting round 2. We were so lucky to have 6 straight days with no doctors. It felt great. We just relaxed and slacked off as much as possible.

Saturday was the big event we have been waiting for for soooo long. We headed up to wilkes barre for PBR (professional bull riding) We watch on TV all the time and Trevor loves it.

It was really great. We had very good seats. It was a little harder to watch the guys get trampled on in person than on TV though. Along with the show Trevor also enjoyed a huge blue cotton candy! He was a mess. The stuff was hanging off his eyes and everywhere else! It was hysterical!
My dad had bought the kids stuffed animal bulls. On the way home Trevor and i where playing with them when all of a sudden i felt something that i have never felt on a stuffed animal before! It was pretty funny when Trevor saw it and even funnier when my Dad had realized what he had bought for his grandkids! I hope everyone catches my drift!

Anyway today our mini vacation ended and we headed to clinic for counts and Chemo. It was a long day but for the most part uneventful. They decided to hold off on the vincristine this round and i am very happy with that choice! Tomarrow we head back for more chemo but it should be a little shorter of a day.

We will also have to start the dreaded shots again this week.

Well i hate to be so short but the kids are giving Chris a run for his money!

Love Jackie

Sunday, November 5, 2006 12:43 AM CST

The first thing i would like to address is all of the underlining that has been on this page. I have no idea where it is coming from and i figure if i try to fix it i will mess something else up!

As i type Trevor is out back with daddy helping with the leaves (sort of). Last time i checked he was running through all of Chris's neat piles with his hummer. It was hard not to laugh.

Trevors counts on friday showed he is moving in the right direction. His platletes where 58, Hemiglobin was 12.7, although the anc is 1612 (which was good)but because its not where they want it he still needs the **##@@******##@ shot. I thought the little symbols would be nicer for the web page than any word i would have put there (smile).
I have now lost count of what number shot we are on but i think it may be something like 17. It has been pretty rough on Trevor.

Tomarrow we head to KOP for counts. Please everyone Do the white blood cell dance and say a little prayer.

So we had to say bonvoyage to the mowhawk that Trevor has been sporting for a very long time. His hair was falling out pretty bad so i thought i needed to come up with an idea to convince him to cut it. Explaining chemo to him did not do the trick. He "didnt like that idea". Funny guy but i dont think it was going to help keep his hair from falling out. So i told him that his hair was breaking off because of all the gel we used in it to keep the mohawk standing. It may have been a long shot but it worked like a charm. He is now sporting his popeye style and has started to make his popeye face again. It only took about a second for me to get used to it and i cant picture him any other way. He looks adorable and his head is so soft and kissable.
His mohawk is currently sitting on my kitchen counter in a zip lock bag. Trevor said "just incase i want to put it on again sometime" LOL!!!!! He is so silly.

I have been meaning to update about Tabby since i left everyone hanging when i had said that i had some blood work done on her. The reason i had it done was because sometimes she has dark circles under her eyes. Blood work would not really be where you would find neuroblastoma nor would the doctors expect Tabby to ever get it. There is only a 1% chance that it is genetic. But because she was already at the doctors for a well visit and i had mentioned that i sometimes worry. (dark circles can sometimes happen when there is cancer in the marrow) They went ahead and did some tests. They assured me they would call if anything was amiss and because i never heard i just assume no news is good news.
Tabby is pretty wild and in no means seems ill it is just hard to come out of this whole thing without paranoia!

Well i want to run out back and see what the little trouble maker is doing now!

Thanks for checking in!

Love Jacke

Thursday, November 2, 2006 7:05 PM CST

I finally found a minute to update.

Monday we headed to chop king of prussia clinic for counts and transfusions. Trevors platletes were 21 so we needed them and his hemiglobin was 8.5, they transfuse at 8.0 but scince his heart rate was a little high and he was looking pretty tired they went ahead and gave him blood as well. It is never fun sitting around waiting for the blood transfusion to finish. I find that i sit there and watch the pump trying to calculate the exact time the transfusion will be done so we can run to the car and enjoy as much of the day at home as possible. Luckily platletes dont take very long. Trevor is now getting blood products from a single donor to hopefully prevent any future reactions like the one he had last week. Thank you donors!

Holloween was great. The kids couldnt have looked cuter. Trevor was a cowboy riding a horse and Tabby was a little chicken. We had planned on getting farm animal costumes for me and Chris but never found the time. We made due and both ended up sporting some pretty scarey costumes.

I have been trying to add new pictures to my Rock you slide show but for some reason i havent been able to upload the new pics. I will keep trying.

Wed. we headed back to the clinic. Trevors counts are moving on up. His Anc was 1012. I was disappointed though to hear that we needed to continue his nightly g shot until his anc reached 3000 or 4000. Trevor is not happy either. I belive tonight marks his 15th shot. He had never needed so many before but he is getting Carbo which really knocks out your blood counts. His hemiglobin was 12.6 I am sure this number sounds a bit better than it is thanks to his transfusion on monday. His platletes were 54 so this is the number we will be keeping our eye on.

Well although i can hardley believe it myself tomarrow we head back to clinic for blood counts. Hopefully Trevor will not need any transfusions. Trevor is due to start chemo every 21 days and this sunday will mark day 21. Because we will be doing the next round out patient the soonest he would start would be monday but i belive they are planning on holding off until a little later in the week.

Trevor still doing great. He has so much energy or "engery" as he calls it. His eye looks 100% better. Thank God!!!!!!!
We are just following his lead and making the best out of each and every moment even when many of our moments are spent at the doctors.

Right now Trevor is standing next to me telling me all about how quick a T rex can beat up a guy. It is precious. His hands are waving his eyes are bright and excited. He dosent let cancer bring him down and i cant help but think what a wonderful little teacher he is.

I will update again tomarrow or saturday to let you all know how we made out.

Thank you everyone for your continued Prayers and support!

Love The Greskos

Friday, October 27, 2006 2:10 PM CDT

Trevor loves scarey stuff so i thought i would spice the page up for a change.

Things have been really good. Trevor is back. He is 100ergy, giggles, naughty, and more. It is great to see him this way. He has been dancing, jumping, and singing and is a little hard to even keep up with sometimes. But this is how we like it.

Tuesday we headed to the chop kop clinic and found out he would need platletes the following day. As soon as the platletes were finished Trevor started getting hives or as he would say "Im getting pokadots" So he had to be re-accsessed and was not that thrilled about it. They needed to draw some blood for the transfusion reaction but luckily he required no meds and the hives eventually went away on there own. I had decided it was a good idea to bring Tabby along but that plan backfired bigtime as she ran around like an amazon women the whole time we were there. So that day was alot longer than we had planned.

Today Trevor and I headed back to kop with mom mom Gresko watching over the Tabinator(smile). We were expecting a blood and platlete transfusion but found out his hemiglobin was 8.7 the same as it was on wed. and his platletes were 77 so the last transfusion really gave him a good boost. They do not give red blood transfusions until you hit 8.0. I was kinda disapointed because now that means we have to be back there first thing monday morning:(

I am not sure if i mentioned the fact that Trevor is also getting his nightly gmcsf shots. Well he hates them. After his shot on wed. evening he said that he just wanted to give Chris and I shots.
Now before I tell this story I must ask all medical staff from chop who may be reading this to scroll down to the next paragraph and If you do read this please do not report us to the doctors or the FDA:)
Last night we got out 2 syringes filled with a very small amount of Trevors epogen (he no longer needs this drug but we had it left over and it doesnt expire for about 9 more months. Chris let Trevor hold his hand while he gave me a shot and i did the same when it was Chris's turn. I think Trevor was much more gentle with me. HE he he! Trevor was happy. It is hard to watch him go through so much so hey if it made him feel alittle less picked on then it was worth it. Alright to anyone of you who thinks we were nuts I dont want to hear any slack! (We are nuts)!

Oh yeah I have a really cute story to tell. A few weeks ago we wrapped the change that has been nearly exploding out of Trevors piggy banks. He was very protective of them and never wanted to take the money out even though we always told him he could buy something cool if he did. So Chris went out and bought him the nintendo ds and a bunch of games for it. He hadnt noticed his piggy banks were empty. Last night he stopped dead in his tracks when he saw his alligator piggy bank (with a clear plastic belly) had only one penny in it. My stomach sank as i thought i was in for a good yelling at from Trevor. Then he turned and said in a sad voice "oh no that penny doesnt have any friends" I quickly ran and grabbed some change that was sitting in the bathroom and i was so happy i wasnt in trouble with Trevor. I went in the other room and was putting away laundry when Trevor came running yelling "Wow look at this shiney penny, isnt it pretty?" I said oh Trevor that is a nickle not a penny.
Now this is when I got in trouble.
Trevor yelled "NO ITS NOT A NICKLE ITS A PICKLE"
I said no it isnt a pickle is food.
Trevor growled and said "SOME MONEY IS CALLED PICKLES"
I just laughed and he huffed and said "SOME GREEN MONEY IS CALLED THAT" and as he turned and left the room he said "JUST STOP TALKING"!

So i ended up in trouble anyhow! what a stinker!

Well i really have to run. But thank you again to everyone Praying for Trevor!

Love Jackie

Tuesday, October 24, 2006 6:26 PM CDT

Jeeeezzzz. I really dont mean to make promises i cant keep. This weekend was busy. Trying to keep Trevor happy and out of pain was a huge task. Saturday he did make it outside for a bit to frolick in the newly fallen leaves. When sunday arrived i was hoping to see an even bigger improvement but he felt much worse. He couldnt stand up at all he ate and drank practically nothing and i was fearing the worst. Everyone was saying that his eye was looking better and although i agreed i have been cautious about posting the improvement. Today i am ready. Trevors bruise is almost completey gone. We thank God for this blessing and everyone praying for Trevor.
I have yet to emaol Dr. Grupp about the improvment. I think i am just scared i will jinx it or something.

Monday came and i knew it was time to get tough with Trevor so on his feet he went. He was less than thrilled but after he got moving everything began to move in the right direction:)
His eating and drinking are picking up fast. He is goofy as ever and his spirit is fantastic.

Today we headed to KOP for counts. His hemiglobin was 9.5 and his platlettes were 39. I didnt stick around long enough to find out his anc because we will be headed down again tommarow for a platlette transfusion. He doesnt really need them till thursday but because there is no oncologist there on thursdays he will get them tommarow and then probably again on friday along with a blood transfusion. Thank you to all of the donors out there!
Our other option was to drive down town on thursday or to wait out all transfusions till friday. I didnt like the sound of either option.

So for now we are just thrilled that Trevor is still respondant to chemotherapy and we are just taking things one day at a time. We couldnt be happier to see Trevor and Tabby fighting and yelling just like they should be doing.

Love The Greskos

Friday, October 20, 2006 7:12 PM CDT

I am sorry i have not been able to update sooner and i am also sorry that i will have to make this update so short but i assure you i have a good excuse. Trevor has had pretty severe jaw pain scince recieving his chemo treatments. This is one of the fairly common side effects of the vincristine he recieved on monday. He has just felt horrible. He would just grab his face and scream. He was not able to eat or drink. The doctors called in some meds yesterday but they just were not strong enough. This morning after a very restless night Trevor woke up and said he just needed to go in and be hooked up and i couldnt have agreed with him more. We packed just incase we were admitted. Today Trevor recieved lots of fluids and some morphine to get him over the bump. We were told the pain could last a few more days. Then he was given oxicodine to take every 4 hours. We are back home for now after a very long day and we are hoping this does the trick. As for his eye it is still to soon to know if it is getting better. It doesnt help that they are now red and swollen from the many tears he has cried and the morphine today almost made him scratch his little face off.

Thank you to everyone who has signed the guestbook, sent Trevor cards and of course to everyone who prays for Trevor.

I promise to give a more lenghthy update over the weekend. But for now we really need a good nights sleep.

Love Jackie

Saturday, October 14, 2006 12:50 AM CDT

Im going to start this entry by taking a few steps back. Thursday morning Trevor woke up and his eye looked about the same maybe slightly worse. Trevor, Tabby, me, and my mom headed over to the king of prussia clinic for the mibg injection and blood work. I was still hoping the the eye wasnt what i thought it was but i was about 99.9% positive that it was. The eyelid is just to strange a place for a bruise.
Trevors blood work came back and it looked very good so we headed home and got ready the the next day.

Friday morning we headed down to chop while pop pop Gresko babysat Tabby. (Thank You)!!! Trevor did fantastic with his scan. He is such a big boy to lay there so still. I did not look at the moniters in the room during the scan because by this point i was 100% certain what the bruise was from and i didnt want to see something that might make me breakdown and upset Trevor while he was laying in the scanner.

After the scan we headed over to meet with Dr. Grupp. When he came over to see us i told him that although i hadnt seen the scan i was well aware of what was going on and i wanted to keep the meeting as quick and to the point as possible because Trevor was going to be in the room with us and i didnt want to clue him in on the seriousness of what was going on in his body.

Well i now know nomatter how much you think you have preped yourself there is simply no easy way to control your emotions. I just hope Trevor didnt catch on. The scan shows several new spots of disease. There are some new spots on his spine some on his pelvis and a few on the top of his skull. They cannot see anything in the area of his eye but feel that may be because the salvatory glands that are in the same area are supposed to light up and they may be blocking the spot in question.

We could not start anything right away because Trevor may still have some chemo in his system and they do not want a drug interaction. Trevor will be starting carbplatin and etoposide on monday morning and we will be admitted for 3 days. Trevor has had these drugs before and i belive he responded very good.

I was very concerned that he did not respond to the last 2 things we have tried and Dr. Grupp said that i can only really consider 1 of them because the cci-779 was not chemo and they only tried it because we had nothing to lose. It of course would have been good if he had responded to the irinotecan and temodar but he didnt. It doesnt mean he is classified as non respondant but i was told that if he didnt respond to these new drugs that we would be in trouble. Those words are not easy to hear.

Anyway there have been enough tears shed in this house hold over the past few days so i will change the subject. On the way home we stopped at toysrus and asked him how many carts he thought he needed. Well he wasnt to amused because he had been up scince 5:15am and it was about 3:00 in the afternoon. He was wiped out from spending the day running around the clinic, jumping off the exam table over and over again and he definetly made Dr. Grupp earn his pay check for the day. Trevor likes to play the sure you can look in my ears game if you think you can catch me.

So he is feeling great and although we notice a change in his eye for the worse it is not causing him any discomfort.

Well i am off to play more video games. I will update again when we return from our stay at chop.

Trevor really needs all of your prayers more than ever.

Thank you for checking in
Love The Gresko

Wednesday, October 11, 2006 2:48 PM CDT

I wish i had better news to report but frankly we are very concerned. Trevor has been feeling great and showed no outward symptoms of his disease. We had so much hope that the chemo combo he was on was destroying the cancer. This morning everything was great until we sat down at the dining table for breakfast. The kitchen is probably the brightest room in our home. We were eating pancakes just laughing about all the silly things Trevor was saying to me before we went to bed last night when my heart sank.
Trevors left eyelid is slightly swollen and has a bruise on it. It looks very much the same as it did at diagnosis of course the eye itself is not bulding but the bruise is similar. Chris came home from work and agrees that it is an unlikely spot to have a bruise. We will have the mibg injection tommarow and the scan the following day. There is no way to do it any faster. Dr. Grupp is going to meet with us immediatly after the scan. This morning has been so emotional so i really cant type much.

We are praying to god this is nothing. We are also praying that if it is something his blood counts will be good enough to start something new right away. We are packing our bags incase we are admitted.

Please pray for Trevor. I cant tell you how bad it hurts to have to think of him suffering.

I will update when i can

Jackie

Wednesday, October 4, 2006 11:42 AM CDT

I finally have a second to update. Trevor feels very very good. That is probably why i cant get a minute to sit down at the computer.

Vacation was great. We did so many things. Nanny and pop pop Mcfeeley came along for the first few days. The first day we couldnt check in until late so we meet the wonderful people who helped us get a great deal on our rooms and hung out with them. They took us to a great store called country junction that had really cool stuff and animals. We also went back to that store on friday to buy some decorations for holloween. It was a good thing we did because just today i found out that the store burned to the ground this week. They got all but 1 animal out of the petting zoo but sadly the animals in the pet store all died.

We hiked around bushkill falls. It was really pretty and i think we got some good pictures. It was alittle rough because Trevor wouldnt walk and Tabby was to dangerous to put down so we were all a little tired from lugging the prince and princess around.

We also went to some animal parks. The first one we went to was little but the kids loved it. They could get very close to the animals and they also had a great gift shop which always makes me and Trevor happy. They had a bear and a wolf that lived together. They had been raised together scince they were babies. The monkeys were cool. Trevor could throw food to them and they were great at catching. I think feeding the pigs from bottles was the highlight though. It was so funny, I cant wait to get the pictures back. I also scored a huge alligator head for my collection. It was such a bargin although i am sure some people reading this wouldnt take one if i paid them to.LOL.

We also went to another animal park later in the week. Trevor got to feed a giraffe. I will post the pictures soon. After the giraffe was done licking the carrots out of Trevors hand my little germ a phobic turned and said "ahhhh I need germ X" Oh he is so silly.

One of my worst memories from our trip was the corn maze. Of course it was my great idea! The kids wouldnt walk, we had a back pack, cameras, frezzer bag, and purse that we had to juggle along with the 2 crabs. One good thing was that nobody was there to hear our big family fight one bad thing was that nobody was there to get us out of the maze. 40 minutes later we came out the same entrance we went in but none of us cared we didnt make it through and i dont care if its the last corn maze i ever see.

The place we stayed had an indoor pool so we tried to swim as much as we could. The kids loved the baby pool. We kept Trevor away from his game cube as much as we could.

We also spent many hours searching for a wallet that was hidden on split rocks grounds 5 years ago. If you find it you get a free vacation. There are tons of clues and some employees gave us some more tips but we didnt find anything. We had tons of fun trying.

When we returned home mom mom and pop pop Gresko came over with a treasure map. It seems pirates were lurking around our house while we were gone. The treasure was so cool and it seems everytime me and Trevor go through the treasure chest we find something new. Thanks guys so much!


Trevor started his 3 round of irinotecan and temodar on sat. I will update more on that later because i am under attack from little Tabby.

Oh yeah Tabby had a well visit on monday. As the nurse was getting ready to give her a flu shot and do some blood work (the blood work is just because im paronoid) Trevor rubbed his hands together and said "Oh boy im getting really excited about this" cant you just picture the devilish smile on his face!

Love The Greskos

Thursday, September 21, 2006 12:15 AM CDT

Ok ill try this again. I updated yesterday only for my computer to kick an error so i needed to walk away from it.

Trevor was supposed to see Dr. Grupp on the 19th but he called to let me know he would be out of town so we moved the appointment to king of prussia. Trevors counts were fantastic, his hemiglobin was 11.1 which indicates his kidneys are doing much better. We stopped his norvasc (blood pressure med) that he has been on scince mid december due to his kidney damage. Well 8 days later his blood pressure was right on target so i am thrilled to have one less medicine to have to remember. Trevors weight was also good. He was schedualed to start round 3 of chemo today but Dr. Grupp felt that it would make no difference to hold off until we returned from our trip. We are heading to the poconos and we are all looking forward to a week away! We would have felt uncomfortable holding off on chemo before but we are looking at thing from a different perspective. Trevor is taking these drugs to have a good life and to hopfully buy enough time until a cure is found. We dont want to interup a good time with the hasel of medicine. Ok enough of the depressing stuff!

So all in all we could not have asked for a better check up.

As i type Trevor keeps popping in whining why i am not playing with him. He is playing with his game cube. We have to drag him away from it to play with something else. He is very good (especially for a 3 year old). He only likes the racing games and only likes to win! Funny guy! We ran out last night and bought an adapter so we could bring it along and he could play it in the car. I was scared to tell him he would have to spend a whole week away from it. Well i guess hes alittle spoiled.

On saturday we headed over to Jillians house for her party. It was great to see the Brandis family and even better because there was no hospital involved or Brian running through the hall in his PJs (just kidding). We also got to see our little friends Abigail and Catherine and i am happy to say everyone is feeling and doing fantastic! It was a really nice day. I was sad that we didnt get to meet Jillians cousin Theresa but hopefully we will get together soon.

Trevors next mibg scan has been schedualed. He will recieve in injection on thur oct 12th and have the scan on friday oct 13th. Yikes how about that for a date. Please start praying that Trevors scan shows he is having a great response to this chemo combo.

Well although Trevor will have his gamecube on vacation I have no intentions of bringing the laptop so i will not be able to update again until we return home.

Thanks for checking in!
Love Jackie

Saturday, September 9, 2006 2:58 PM CDT

Ok finally a minute to update. The kids have been wild and crazy. They keep us very busy.

Trevor is doing awsome on his second round of chemo. His stool has been more normal than it has been for the past year thanks to the fantastic Dr. Grupp recomending Trevor have a fiber supplement put in his diet! I was really scared to start this round thinking that we would surely be admitted for diarreha so we have all been breathing huge sighs of relief.

Now for the bad but not horrible news. Scince early wed. we have been morning the loss of our beloved swimming pool. I was standing on the back deck talking to my dad who is vacationing in California. I was being a bit cocky by teasing him. I think i said "oh it must be nice" and "you guys have the life" We were laughing because with all of my bad luck he couldnt say anything back to me. The dogs interupted us with barking and i looked to see what they were barking at and much my fathers and neighbors suprise i started blasting out the big F-bomb as i watched a 60 to 65 foot tree fall slowly but surely smashing thru the back fence, into the pool, across the deck, and thru the font fence. I just couldnt seem to do anything but curse and scream.

Trevor came tearing outside and after seeing the destroyed pool just started wailing for me to go and pick up the tree. Oh if it were only that easy. The neighbor had thought our house was hit by a car, I was concerned the neighbors house was flooded from all the water, and my father was just sad that neither of my dogs had been taken out along with the pool. Very funny Dad!
It was definitly strange to stand there and actually witness a tree falling over. I must have great timing.

Well other than that there is really nothing to report. Trevor does not have to return to clinc until the 19th so we are just enjoying every quiet day.

Thank you to all who pray for Trevor!

Love Jackie

Wednesday, August 30, 2006 1:54 PM CDT

I am happy to report that Trevor is once again feeling fantastic. Last Friday things took a turn for the worse as far as the diarreha went. It never got out of control but did get worse. I knew we were getting close to a possible admission and just the thought of that is enough to make your heart sink. I held off on calling into Chop and thankfully things got much better and quickly. I knew the minute i would call they would say get here now and i knew that he was not ill enough to be kept there considering he was taking in much more than he was putting out and we knew this was all chemo related and he did not have a virus. So it seemed just laying around playing video games and watching movies did the trick! I cant think of a better kind of medicine than that.

Yesterday we had an appointment with Dr. Grupp and things went as good as we hoped they would. His weight is good considering his eating has dropped off dramatically. Dr. Grupp feels Trevor is already at a disadvantage as far as the diarreha goes considering he has had C-diff (a bacteria infection) for the past year (scince his 2nd transplant) There were many drugs thrown at him to combat it but all failed. Dr. Grupp suggested that Trevor should take fiber, this stunned me at first but he explained it would help give Trevors stool more mass, so we added that to his list. Trevor will also be taking a probiotic to replace the good bacteria he is lossing. Oh yeah and he will be starting back up on bactrum as well (this is an antibiotic to protect from phemonia). Ok so Thank God Trevor is such a tropper because when you add all this to what is already taking it is slightly overwhelming!

Trevors counts were outstanding Dr. Grupp said they where exactly how he likes to see them! Oh i cant forget to mention how fantastic Trevor did with his port accsess. Not even a flinch! After Megan (Trevors fav nurse) did his labs Trevor said "all done" and then reached for his port to deaccsess himself. Oh my did i jump We both yelled no no no and Trevor with his cocky little face just said "well i know how" What a stinker!

Tommarow begins the first day of cycle 2 of chemo. I can hardly belive its here already! So please say extra prayers that this round gos smoothly and that Trevor continues to feel well.

I also would like to ask everyone to say prayers for the Davis family as they are mourning the loss of their little boy Trey. He passed away on sunday morning. Trey was such a little sweetie. He always looked like a fish out of water to me. Not that he was chubby but compared to the other onco kids he was a little football player, where ever he would cruise to in the halls he always had a snack or was looking for one. I have a really cute picture of him and Tabby i will post soon. They were acctually sharing a snack in this photo. I feel very blessed to have been able to meet such a wonderful little guy and his terrific family.

You can stop by and give their family words of encouragement the same way as Trevors just type pa trey

Thanks for Checking in!
Love The Greskos

Thursday, August 24, 2006 2:15 PM CDT

I didnt mean to go so long without an update. Trevor finished his 1st cycle of chemo on monday evening! He continued to do a great job at taking all of his meds with no complaints! Hes awsome. The hardest part has been some diarrehha (cant spell) It hasnt been really bad, just here and there and he takes imodium which has worked wonderfully. I think the saddest part of it is when he doesnt make it to the bathroom and he cries thinking he did something bad when he has no control of it what so ever. It just breaks my heart. He is such a good boy.

His blood counts looked really good on tuesday. They were almost identical to what the were before starting chemo. I of course then worry about why they look so good, Dr. Grupp had said these new drugs should not affect his counts too much but scince i have not spoken to him about his latest counts i let my mind go on overdrive. I have considered calling or emailing him but i will be seeing him soon enough (next week) so for now we will put our worries to rest and just enjoy the weekend!

On a very happy note we went over to the philadelphia zoo on saturday evening. The Eagles hold an event every year for onco kids and families. Although we didnt see any Eagles (im not sure if there were any there, and i wouldnt know one if i laid eyes on them) We got to see our wonder friend Jillian and her fantastic family. We became wonderful friends with them over the past year and a half as Jillian and Trevor were both diagnosed with cancer within days of eachother. They have been a great support and i know we have made lifelong friends. Jillian looks great and is doing amazing. We love you guys and miss already!!!! You can visit Jillians page the same way as Trevors by typing in pa and then jillian .

Other than that everything has been going good. Trevors still bouncing off the walls! Tabby and him are still bickering like crazy (just how it should be LOL)! We have done a little swimming and a lot of treasure hunting. Today we went to home depot for some new screen for the patio door (some little pirate attacked ours with his sword) Trevor also picked up a new supply of flash lights I cant imagine where all of his flash lights get to! Trevor loves the Home depot so it was as good to him as a trip to toys r us.

Oh yeah Trevor did throw up once last night, that was the first time scince starting this new drug and hopefully the last!

Please continue to pray for Trevor!

Love Jackie,Chris,Trevor,&Tabby

Wednesday, August 16, 2006 1:23 PM CDT

We started chemo last thursday at home, It has gone very smoothly. Trevors schedual went as follows. Thurs, fri, sat, sun, mon he took suprax (an antibiotic), zofran (nausea med) then an hour later he swallows 3 temodor (chemo pills), then an hour after that we mix his irinotecan (chemo) in about 1 table spoon of cran grape juice and he drinks that. The irinotecan is apparently pretty nastsy but Trevor has made no complaints. I always make sure there is a yummy chaser close by that he sips off of if needed. We were heavily warned that this drug is sometimes just to hard for the children to drink and they sometimes need to get the drug by IV so we feel very blessed that this has been so easy for him to do!

Trevor seems to have no side effects from the drugs either. He will occasionally Gag while eating But that really isnt anything new for him.

We had off tues, and wed from the chemo and we will start back up on thursday for another 5 days of irinotecan. Trevor will be seen at king of prussia one day next week to see how his blood counts are hanging in there and then return for a follow up with Dr. Grupp the following week.

This morning Trevor declared that he thought he may need a new toy and scince Aug 10th was Trevors Re Birthday (from transplant) and we didint get a chance to celebrate being that we were restarting chemo on that very day I thought there would be no harm in running over to walmart and letting him pick something new up. When we got there we stopped to say hi and make a donation to a really great bunch of people who were having an Alexs Lemonade stand. I had asked if they were doing it because they knew anybody fighting cancer and they said no that they just thought it was a really good cause (I couldnt agree more) I told them about Trevor and how he is fighting the same kind of cancer that Alex fought for so many years. They were so sweet and said prayers with Trevor and even gave him $20.00 to go buy a new toy! What wonderful people! Thank You!!!

We also have been treasure hunting in the yard. Trevor uncovered a chest full of beautiful jems, jewlery, and coins! I cant imagine how that got there! LOL!!! But it seems we may have caused a problem because now the little pirate is digging up the yard! I also have run out of interesting things to burry so it is time for me to hit the dollar store for some more treasure!

Well i guess thats about it. The kids are napping so i am off to relax!

P.S. Congrats to Jillian and Ruby on clear scans!!!! Great job!!!!

Love Jackie

Wednesday, August 9, 2006 1:40 PM CDT

Ok I hope that didnt scare anybody!

I was well aware that getting these news drugs in our hands would be no small task but with that said I am just so angry at just how much work it has been! The irinotecan was delivered this morning (Thank God)!!!! This was the drug that had caused the most problems getting AT FIRST! The drug also known as temodor (the easiest way to spell it) is finally secured at a pharmacy in pottstown, well at least 5 of the 15 pills needed for the first cycle. They should have the rest there by tommarrow.
I am so frustrated by the amount of time that needed to be spent on this! I imagine that many of the people i have been in contact with over these new medicines were just hoping i would give up and go away. Yeah right! Alright enough said about that!

Yesterday Trevor and I headed downtown for an appointment with Dr. Grupp. Trevors blood work looked great and although his hemiglobin is still low it has held steady over the past 2 weeks. Trevor did awsome with getting his port accessed! He asked if Megan could do it and he said to her "just use the little needle" Megan replied that it was already done he looked thrilled! We headed over to xray with the wonderful nurse Margi who was in charge of the last study Trevor was on. The x ray room was frezzing and Trevor had to sit up with his back against a very cold piece of metal, He did a great job but didnt like it. Next we headed over to cardiology for an echo. Trevor likes getting these done so that was a breeze. Dr. Grupp was held up so we waited for him. I never mind waiting because he is fantastic. Trevor was a maniac though and it was very hard to really get to talk about the new drugs especially in a pitch black room! Trevor just couldnt keep his hands off the light switch! LOL!
So we didnt get home until late but we were happy we got alot done and got to see some of our friends!

We should be starting the drug tommarrow evening if all gos as planned. We are praying for minimal side effects and a good response!

Since i updated last we have done lots of fun things. We went to a carnival on friday, make a wish soft ball game on saturday to meet the great team from Russos pizza den who were Trevors wish sponsers. We hit Cabelas (Trevor loves there fish tank), We also took a long walk through the french creek woods! So we are just keeping really busy enjoying every single wonderful moment and trying not to let our minds get to far ahead of ourself!

Thank you all for your prayers!

Love The Greskos

Thursday, August 3, 2006 2:09 PM CDT

I had planned on updating sooner but we have been super busy!

Last friday we headed to Philadelphia but this time just for fun. We hit the Academy of Sciences Museum and Trevor had a blast. He really liked the dinosaurs but enjoyed the fossil dig the most. He sat there with his little goggles on with chisel and brush in hand for a good half hour. We had to drag him out! He also enjoyed the bones exhibit where we played doctor and read CT scans, X rays, ect. Of course he is very advanced beyond his years when playing Doctor!

We decided to stop by the zoo to try to catch a ride on the zoo balloon but they were not running it! It seems like they only have it up in the air when we are way to busy to stop! We only stayed at the zoo for about a half hour due to the heat but scince we are members it doesnt cost us anything to just stop in.

Saturday night we had a camp out. Chris set up 2 tents out back, we had a camp fire and roasted marshmellows. Trevor was having fun and we were having fun especially scince he is so easy to scare! Me and Trevor finally crawled into the tent and then it dawned on me that i must be insane! It was steaming hot and i started to feel like i couldnt breath so in we went with our air matress in hand. Pop pop Mcfeeley wasnt far behind us. Chris was the only one who made it the whole night but it didnt suprise me scince he used to be in the army. We will try it again when it cools down.

Other than that we have just been swimming. Trevor puts on his innertube and jumps off the steps over and over again! He has a blast.

We also have a new ant farm. Trevor worked really collecting all the ants. Trevor sits and watches them and then says that they are really hard workers. It seems we may have mixed the ant breeds by mistake because their body count is rising by the hour. Oh i hope Trevor just thinks their resting. I also hope Trevor is content with the amount of creatures that are currently residing in our home because i am not so sure we can stand any more!

We also planned a trip to the poconos in september that we are all looking forward to. Trevor said he wanted disney but i think this will be lots of fun and maybe even alittle relaxing! Speaking of disney i cant believe i still have not posted the pics from our second trip! Opps i will put it on top of my list!

Other than that i have been busy dealing with insurance and pharmacies trying to figure out if the new drugs were approved and if so who will even order it. Walmart said no way! I knew i loved target for more than one reason!

Also a note on Tabby! She is doing well. She has become a bit of a bully though and has been caught more than once pulling or pushing Trevor over. Thats right the tables have turned. For the most part they play nice but it is amazing just how quickly she is getting into the terrible twos!

I will keep everyone posted!

Love The Greskos & critters

Wednesday, July 26, 2006 6:42 PM CDT

I would like to start by saying Trevor as always did an amazing job today. He held still and was such a big boy!

Unfortuntly the drug Trevor has been on cci-779 did not work to destroy his disease. I could planly see the old spot on his spine It was no bigger which is great but i also thought i saw a very small new spot a few inches higher on his spine. I was hoping of course that my untrained eye and amature reading was incorrect but unfortunatly i was right on.

I spoke with Dr. Grupp this evening and we discussed what was next. He said that he thought we had nothing to lose trying cci-779 at relapse because Trevor is not symptomatic but that it is the best choice now to move to something more conventional. I was given 3 options that he thought would be the best for Trevor, 2 of the options would require clinic visits almost daily which to me seems like a horrible punishment to a Child who not only hates going there but deserves to be where he is the happiest. The option i picked are 2 chemo drugs Irinotecan and Temozdomide which he will be able to take by mouth one is a pill and the other is liquid. If the liquid is to hard to get Trevor to drink than we can recive that drug by iv but we are hoping he can stand to drink it to save him alot of trips to the clinic. Trevor will get next week off before we meet with Dr. Grupp on Aug 8th and start the new treatment.

Well today has been nothing less than draining and very emotional so i am going to cut it alittle short. Thank you to everyone who continues to keep Trevor in there prayers!
Although we feel like we have been kicked when we were down we still believe in miracles!

Love The Greskos

Thursday, July 20, 2006 6:57 AM CDT

Quick update.

Trevors appointment on tuesday went good. His blood counts look very good with the exception of his hemilgobin. It is 10.4 and has been dropping about .2 each week. This is because of a combination of his kidney issues along with the drug he is getting. As long as his upcoming scan gos well we will stay on a tuesday schedual so we can hang on to Dr. Grupp.

Trevors cold seems to finally be getting better, I think today is something like day 12 of it so it has been a real long one. It has not really held him up any though he has been busy playing hard! He might just be a little more crabby than usual but i suppose i feel the same when im sick.

Yesterday i had the best time with him in the pool. He actually got wet, he usually just sits on his big raft and floats around shooting the rest of us with water but yesterday he was wet from the neck down and i could just tell how proud he was of himself as was I.

Tabby is getting much bigger (not really growing larger just getting older) She has learned the word cow, thank you, along with a few others. She is head over heels in love with Trevor. No matter what kind of toy we give her she just wants his. As hard as it has been to have a new baby come into this whole thing seeing them together is just the best thing in the world.

Next tuesday we head down for treatment and then an mibg injection. then he will have the mibg scan the following day. Please pray that the scan shows no evidense of disease. We are really hoping this drug will work for Trevor long term.

I will try to update this weekend but if i dont i will update wed. evening with the results.

P.S. Tammy, Tyler, & Gang It was really good seeing you guys!

P.S.S. Brandis family hope you have a great trip!

Love Always The Greskos

Thursday, July 13, 2006 7:48 PM CDT

Everything has been going good around here. Other than the kids both getting rid of some nasty colds there hasnt been much to report. We have just been playing and enjoying the weather!

Last week was busy, we did manage to get out of chop at a reasonable hour though. Treatment has been pretty uneventful, no real side effects to report and other than a little hair shed i am happy to say he has lost no more and is hanging on to his mohawk with pride! Last week on our long day we went over to the mutter museum. That is basically filled with medical oddities! I know it may have been a strange choice but Trevor really enjoyed it and just thought that there were monsters everywhere!
He says he is ready to go back. Maybe next time we will just stop at the please touch museum instead! LOL !

Trevors blood counts have bounced back! His hemiglobin is still falling slightly but with the kidneys and the drug it was certainly expected.

I also forgot to mention that Trevors bone marrow aspirate and biopsy came back clear so that is good news and his urine tests also remain normal.

The more i mention about not updating enough it seems the less i do it so i will not say anymore about it lol!

Please continue to pray for Trevor he has an mibg scan coming up in 2 weeks so we are anxious to find out if this drug is working

Love The Greskos

Wednesday, July 5, 2006 1:11 PM CDT

Ok i know i am way over due on an update once again. Things have been pretty busy but all in a good way. Trevor spends lots of time in the pool or his pirate ship. I know i need to update pictures and i promise to do that soon to. Trevor is at the fish store right now with mom mom and pop Gresko and his cousin Tyler. I wonder if are family is growing as i type LOL!

Last Thursday went well. Nurse Megan accessed his port so fast he really didnt even have time to think about it so that was good. His counts have dropped some but not so far that he needs a transfusion. I am hopping they are still ok tomarrow. Tomarrow is going to be a bear of a day. Trevor and me will be leaving the house around 6:30am he will need bloodwork plus an iv for additional bloodwork he needs to be seen by Dr. Grupp before getting treatment then after he is done with that we need to come back one hour after and six hours after the infusion is done for additional blood work. We also need to return friday and monday morning for even more blood work. We will most likely not get home until about 9:00 pm so i am praying for Trevor to not be to upset about all of that for tomarrow. Luckily my mom will be staying with Tabby so i wont have to chase her around as well.

I am hoping to take Trevor over to the UPenn museum and out to lunch/dinner while we wait for his last blood draw so hopefully the weather is good for trecking around the city.

Sunday night Trevors Uncle Heath and Pop pop Gresko set off a fantastic fire works display. The kids really enjoyed it. I am pretty sure the fireworks were bigger and better than our local townships display. Even better no cops showed up to spoil the fun and the men didnt blow themselves up in the process.

On monday we went to Dutch wonderland with Chris,s family including his cousins. It was hot but alot of fun. Trevor even braved the log flume! After we all came back here to enjoy the pool and the awsome new pool toys from Aunt Christy and her family! Thank You Guys!!!!

Trevor has also been putting his bug vacume to good use. Every day he is out with daddy hunting all sorts of creepy crawlers and then coming in the house with them! EWWWWW!

So we are just busy having fun and doing whatever Trevor wishes.

I also have a prayer request for our buddy Trey. He is our little friend who is battling 2 different cancers. His parents were given devastating news and they have decided to stop treatment because continuing would be much more damaging to Trey. I have become friends with Treys mommy over the past 17 months and they are just an amazing family. Please pray for the Davis family to stay strong and of course pray for little Trey to be granted a miracle. You can stop by there page and give them words of encouragment by typing PA under directory and trey under page name (same way as Trevors)

I will try to update again this weekend. I can already hear the (Oh yea sure you will)coming from everyone! LOL!

Thanks for Checking in!
Keep the Prayers coming!

Love The Greskos

Sunday, June 25, 2006 2:22 PM CDT

The past week has been a tough one. Not for Trevor he feels great just for me. I believe i made a mistake by watching the documentary on PBS last week called A Lion In the House. It followed families who were battling childhood cancer. I think the movie was great for educational purposes and to get these kids stories out there. Unfortunatly for me the part that stuck with me the most was how many families regreted how far they went with treatment after relapse. It is just a really hard place to go. There is no written rules and how do you know when it is to much? Oh boy well im sure you get the picture and as many times as i ask myself this question it will never get easier.

On thursday Me and Trevor headed to chop. My mom came over here to watch Tabby. She is just not portible like she used to be. Trevors counts were all good. He was not happy about having the port accsessed but it went quickly. The treatment went well and we just played play dough until it was time to go.

Friday we went over to Twin Valley High School to go support the Light on The Hill team. That is the name of my churches team. And Trevor walked in the cancer survior lap. It was really nice. Trevor was even introduced. He did more running around the track than walking. On our way there i told Trevor that he was going to wear a purple shirt because he is like a power ranger and that all of the people wearing purple shirts were also power rangers like him. He had such a funny look on his face when he saw that 90% of the people wearing purple shirts also had white hair. It was funny and gave me and Chris a good laugh.

We have been spending as much time as possible in the pool. Trevor just floats around all day. On saturday Nanny and pop pop Mcfeeley were up and they took Trevor for a dip. After he got out and was dressed i decided i would fix his mowhawk. My heart just sank as my hands had huge clumps of hair in them. Oh i just dont know what i will tell him if he losses all of his hair again. He is so much wiser than he was 16 months ago.

Saturday night we headed to our friends Brenda and Gregs house for a party. When we arrived they told us that they have been selling tickets for Trevor. Alot of people really worked hard. Thank you Brenda,Greg,Kate,Bambi, and everyone else involved. I hate to be a name dropper for the fear i will forget somebody so please forgive me if i do. It just touched our hearts so much to have such caring people in our lives. Our whole community has really been
amazing. Local companies pitched in and raffled things off! I am just so greatful to have so much support. Seeing so many people who care about Trevor gives me so much comfort. I find strength knowing that these prays can not go unheard. Thank you so much from the bottom of our hearts!

Trevor is currently crying because he cant see me! Oh My!
He is suffering with seperation anxiety even though im in the next room LOL! So i will cut it short here so not to wake Tabby!

Love Jackie

Monday, June 19, 2006 1:09 PM CDT

Oppps! I really did mean to update this page sooner but somehow life got in the way.

Sometime early last week Trevor made a request to bust out the animal game that we used to play together in the hospital. I instantly knew i was in trouble, not because i didnt have the game but because i have a terrible additive personality when it comes to computer games. I have struggled on and off with this for some time. If i even glance at Zoo tycoon, The sims, Rollercoster tycoon, sim city, yada yada yada the list gos on I just cant stop playing. So to make a long story short Trevor seems to share this habit with me as we have spent many, many hours building zoo's. So i guess that is part of my excuse for slacking on my updating.

Thursday morning we headed to Chop for what was supposed to be a very long day. Luckily the RN in charge of making sure everything happens per protocal on this study greeted us with the good news that we would not need to stay as late nor would we need to return on friday because they have since changed some of the requirments.

After lots of blood work and a dose of benedryl incase he would have a reaction Trevor recieved his drug. It was uneventful so we were very happy about that. When it came time to deaccsess his port there where many tears. It was still very sore and i think it gave him hellish flash backs of dressing changes. I am sure he will not be happy about it for a while until he gets used to it but I do hope it is easier next time.

Trevor has seemed fine since he had his treatment. We have not noticed any side effects at all. We were told that this drug has seemed to have little effect on how the children feel while on it so that is a good thing. We are just praying extra hard that it is killing those bad cells.

Trevor has been playing hard! He spent all day sunday in the pool. I think he got in at 11:00 and stayed in (or rather on his float) until 7:00pm. He did stop for a quick lunch. First thing this morning he was ready to get back in so we spent the last 2 hours swimming as well.

On saturday I got a call asking me to stop in at The Old Village Inn in morgantown. It is a local bar and grill and a place that i like to go and sing kareoke. I am sure most of you are thinking that you didnt know i could sing, Well I cant! I am bad but i have lots of fun trying. They had a chicken bbq lunch for Trevor. They gave me a very generous check and told me to take the kids out on a shopping spree! I cant even begin to say how good it feels to know what wonderful friends i have and that there are so many people out there who care about Trevor and our family!
Thank you to everybody involved and especially The Old Village Inn!

We will return to chop on thursday for Trevors 2nd treatment. Until then we will just try to enjoy the summer and take it one day at a time.

Thank you to everybody for signing the guestbook! Please continue to pray that this treatment is working.

I will try to update again on wed.

Love The Greskos

Wednesday, June 14, 2006 5:40 PM CDT

I just wanted to give a quick update on Trevor. Today was long to say the least, I should not complain though because i have beened forwarned that tomarrow will be even longer.

Trevor really pulled through it all like a champ. They allowed me to go into the or with him while they put him under. Trevor was really taking it in stride. He is usually much more tense about these things. Maybe he was just so busy bursting with giggles over the funny outfit they made me put on before going in. Surgery went well. The wonderful Dr. Mattea (sp) cleared a spot for Trevor. He was the surgeon who removed Trevors tumor last may and I just think he is a wonderful man. The port went in without any problems. We have not really been able to see it yet because they sent him home accessed. They also left in the iv from today so we can hopefully spare him from being poked for the rest of the week. Trevors bone marrow biopsies and aspirates were also done. I am not sure when those results will be in. After Trevor woke up enough to be moved we ran over to cardiology and had an echo done that he will need to start treatment.

Sometime during the chaos we formed a plan with oncology to start treatment tommarrow. We will need to be there first thing in the morning and we have beened warned that we will be shutting the place done as well. Because this treatment is experimental and phase 1 at that, we will need to do all of his treatment and labs at chop in philadelphia No More King Of Prussia! Oh well we will deal.
The treament only runs for an hour but there are many blood draws that need to be done to participate in this study and they start a few hours before recieving the drug and end many hours after.
We will also need to return on friday for more blood work then we are hoping to get a few days off.

Trevor is currently stationed on the couch watching a movie. Between the sore chest, sore back, and iv in his hand he is a little frightened to move. He is doing well though. He is still smiling. He is just so amazing!

Thank you mom-mom for watching Tabby today, she is really excited she gets to have you all to herself again tommarrow!

I will update again as soon as i can!

Love The Greskos

Tuesday, June 13, 2006 12:30 AM CDT

Thank you to everyone who has left us words of encouragement it really does mean alot to us. It is hard to write about how we feel at this time because their are moments of hope, feeling like we can conquer this with no problem, their are many times when my mind just wonders and I think about the worst (I try not to stay in that place to long) and mostly we are just scared. We are just trying to make every day as special as it can be for Trevor because that is really the only thing we can do.

Today after Trevor, Tabby, and I returned home from Tabbys 15 month well visit where she checked out just fine and Trevor got to have the pleasure of watching Tabby get a shot I decided to put a call into CHOP because I still hadnt heard anything. Well a few hours later I recieved a call back "Oh I am very sorry nobody called you to let you know Trevors surgery is tommarrow" "Did you make an appointment to have him checked out with anestisia for today?" Gee why would i make an appointment that nobody had told me he needed and i also wonder how in the world they could acctually forget to inform the paitent when schedualing surgey. Oh well i suppose it did take my mind off of cancer for a few hours while i ran around like a chicken with its head cut off.

Tommarrow Trevor will have his port placed and also bone marrow aspirates and biopsies. We are supposed to come home tommarrow and then possibly return the following day to start treatment. This part is up in the air but as far as i know he will be starting treatment at least by tuesday. The drug Trevor will be starting is (I think) cci-779 To new to have a real name. It is a type of gene therapy but i know little more about it. I have total confidance when it comes to Dr. Grupp and that is that no matter how this whole thing turns out he will always do his very best for Trevor.

Trevor continues to feel great. He is having a blast on his pirate ship. He has learned many funny phrases such as "You survy dog" His new pirate name is Trevor The Terrible and we have named his boat The Bloody Mary. He also has an on going fishing tourtament going in the pool, He has a fishing pole with a magnetic fish and although it is the same fish everytime he reals it in he will gasp and say wow look at this giant hermit crab, hammerhead shark, ect. What a great imagination!

Please pray that Trevors surgery gos off without a hitch and please also pray for Trevor to have a complete cure of neuroblastoma.

I will update as soon as i can.

Love The Greskos

Wednesday, June 7, 2006 6:11 PM CDT

It is with much sadness I have to report that Trevor has indeed relapsed. His mibg scan today showed uptake once again. The spot has thankfully remained unchanged over the last couple of weeks. We were given many different options to chose from. The first was to just wait for him to start to show syptoms and enjoy the rest of the summer before starting treatment. This was not highly suggested by Dr. Grupp nor did we like the idea. The second was conventional chemo, another was to start an experimental drug, or we could try mibg therapy which was not highly recommended at this time nor has Dr. Grupp ever given anyone that treatment with such a small spot of relapse, there is a very logical reason behind it I just dont feel like getting into it.

If we chose chemo Dr. Grupp feels that Trevor would achive NED (No Evidense Of Disease) very quickly. I am sure people are thinking that would be the best choice than. Well if he achieves ned status he will not be eligible to start these other drugs until another relapse. So in starting an experimental drug we can then add chemo to it at any time. Dr. Grupp feels starting an experimental drug will leave the most doors open for Trevor and because we have caught it at such an early stage (he is in no pain) we still have the time to go this route.

We have for the most part decided that Trevor will be having a port placed sometime next week. This is under the skin and allows him to escape vein pokes. He will also be getting bone marrow testing done. Dr. Grupp is not to concerned about his marrow at the time being and said that if there is cancer there it is in very small numbers.

Trevor feels great. We are so proud of him. He layed so still today for his test like such a big boy. This is just so hard to deal with. We are trying really hard to not let him see us upset, we do not want him to know what is going on. Spending so much time at the hospital in his little life has him on constant guard. He always asks us if he has to go back, so this is just breaking our hearts.

It means so much to us to know everyone is keeping Trevor in their Prayers.

Jackie

Saturday, June 3, 2006 8:59 PM CDT

Uhgggg! Here i go again. I just finished writing my post and poof its gone. I have just cursed my computer out and i didnt hold back. Poor thing!

Sorry for not updating sooner it was not that i didnt have some news it was just that i have been in no mood. Trevors ct scan from before transplants shows that he did have disease in the spot in question at one time. This is no suprise because he had cancer bascially everywhere. The latest scan shows abnormalities in the spot but it is impossible to say if it is exactly the same or not. Trevors body cancer free or not will forever have abnormal spots where cancer had once been. So there is no real answere from this scan and it was more or less done as a baseline. Dr Grupp does however feel it is more than likely we are looking at relapse but he also said that he sees strange spots on mibg scans often enough that turn out to be nothing and we have no other choice but to hold on to that hope. Relapsed neuroblastoma is not considered to be cureable only treatable so it is absoulutly devastating to even think about.

This week we will be very busy. Tues. Trevor has an appointment at the king of prussia clinic for a ct scan of his head (they are just doing this as a base line) blood work, and an isotope injection for his mibg scan on wed. After his mibg scan we will meet with Dr Grupp to review the tests and discuss what our next step will be. We will be trying the mibg scan without being put under. He did fine last time when we had to go back for more pictures so we are hoping it saves him some heartache and tears now that he will be able to eat and drink prior tho the test. Dr. Grupp agrees and said the worst that can happen is we fail and need to reschedual. So please say a little prayer that Trevor can hold still for this very long scan.

Trevor is feeling great. He is wound up from morning til night. He has had alot of time outs today! I love my little stinker (naughty or nice)! His weight is at a record high of 28.4 pounds! We are hoping to hit the big 30 soon.

I once again need to ask for your Prayers.
Please Pray that Trevors upcoming scans are clear.
It is sooooo important. I would elaborate but i am pretty sure everyone already understands.

Thank you for keeping Trevor in your thoughts and Prayers!

Love The Greskos

Monday, May 29, 2006 3:54 PM CDT

Oh boy I have so much to say yet only about a minute to say it all in.

Disney was awsome. We had a huge luxury suite 5 tvs, 3 bedrooms, 3 bathrooms, 2 big hot tubs. It was really nice. We started off with a visit to gatorland It was super hot and sunny so we kind of rushed it so we could get back to the swimming pool. We didnt wrestle or cuddle any gators but we did some up close feeding where you stand about 2 feet away from the really big ones and drop chicken in there mouth. The only thing between you and the gators is a man holding a broom stick! We dont have to many good pictures of this because when they told us to kneel down Trevor got really nervous. I didnt think it seemed like a great idea either. It just seemed a little to crazy to be on our knees with chicken juice dripping off our hands.

We also did mgm 2 times. The first time Trevor met all the Power Rangers but each one at a seprate time. The 2nd time they gave him a private meet and greet with all of the rangers. It was so cool! We of course went over to magic kingdom where we went on just about every ride. I may have cheated by putting his make a wish button on but i figure he more than earned it. So now you all know we didnt stand in line for anything! No Guilt!!!!

We went to seaworld one day which of course was tons of fun and we also did epcot where he suprisingly enjoyed many of the rides. We also managed to slip in some fireworks, lots of shopping, hours upon hours of watching Trevor play in the huge tub, and lots of time splashing in the pool! Tabby hung in there like a trooper and enjoyed almost all the rides right along with us! Thank you Nanny and Pop pop McFeeley it was just what we needed.

Another big exciting thing is Trevors new Pirate Ship! It has been at the top of his want list since he was old enough to want. When we got the news about the mibg scan i ordered it right away. Trevor had enough money in his savings for it and i feared he would not be here to spend it. Yes this is hard to write. My mom and Rick convinced me Trevor would be here for a very long time and they decided the would buy it. Thank you so much! The amish men who were building it worked so hard to get it done it was suppose to take six weeks and it was done in only a week! It arrived just as we where leaving fo disney it is so cool! I will post pictures soon. While we where gone Daddy, Pop pop Gresko and Our good friend Robert worked really hard to get Trevors Playground ready for him. We are also getting ready to build a swing set on to it thanks to Uncle Heath, Aunt Christy, and the Wonderful Kane family who all pitched in to make sure Trevor has a really awsome playground. Thank You All So Much!!!!!

Trevors urine test came back completely normal! That was great to hear! Like i said before although each test that comes back good is great it does not put us in the clear. Tommarrow morning we are headed to chop for a cat scan. Trevor has had cat scans before so it will be able to give the doctors a comparison. We are asking for everybody to pray for a clear cat scan. If this comes back clear we will wait a couple of weeks and repeat the mibg scan. We are all really stressed but we are really trying our best to just have fun and enjoy everyday as best as we can under the circumstances. That is code for me and Chris are scratching each others eyes out! LOL!

Well i will update as soon as i hear anything!

Thank you all for your Prayers!

Love The Greskos

Friday, May 19, 2006 1:20 PM CDT

UPDATE!
I just talked to Dr. Grupp. The Mri doesnt show anything in the spot in question. There are some abnormal spots on his spine, but those spots should be there because Trevors cancer had basically attacked his entire spine so there will always be abnormal spots on his bones. They said they were actually amazed it looked so good. This does not mean we are in the clear though. The cancer could be there and just not showing up. Trevors urine test will be in next week and may clue us in alittle more. Even if the urine comes back normal we will get another mibg scan in 6 weeks. This will be a wait and see kind of thing. But each good test result brings us alittle closer to Trevor remaining cancer free. Dr. Grupp did say the mri is very sensitive to cancer in the bone, so it is great news he sees nothing! Please continue to pray for Trevor. We will update when we are back from Disney!!!!!



Well i know everyone is waiting for word but we still know nothing. Trevor also did a urine test which takes about 3 days to come back. There are certain markers for neuroblastoma that show up in the urine. Dr. Grupp said he would call with all the results probably by saturday morning. I think they want all the results back so they can make sure they have a full picture before telling us anything. Trevors scan was almost postponed due to his cold. The doctors felt his lungs didnt sound good. Dr. Grupp said he wanted to go ahead and we have trusted him for some time now and we are not going to stop, so we went ahead with the mri. After the mri they did an exray and everything looked great. It was just a cheast cold.

We also headed up to clinic for blood counts. His hemiglobin was 11.6 This is great! Trevor hasnt had an epogen shot since april 11th.



I am sure you are all wondering why the heck we have a dancing micky on the page at such a stressful time.

Well tommarrow at 6:00pm Pop pop and Nanny Mcfeeley, Trevor, Tabby, and Me are getting on a plane and heading to Disney World! We are very sad that Daddy has to stay behind and work and we will really miss him but Chris said that it just makes him happy to know we are going to have a great week. Trevor is thrilled! There just couldnt be a better way to take our minds off of things. We will be gone for a whole week. We have lots of plans like getting to meet the Power Rangers (Trevors Favorite) we are even going back to visit all those cute critters at gator land!

I will try to update the page if i hear anything before we leave if not maybe Chris will do it when we are gone.


THANK YOU ALL FOR LEAVING US WONDERFUL WORDS OF ENCOURAGMENT! YOUR PRAYERS MEAN THE WORLD TO US!

Well i am off to pack!

Love The Greskos

Monday, May 15, 2006 6:33 PM CDT

First I would like to thank everyone for their thoughts, prayers, and words of encouragement. We greatly appreciate them and they really are helping us to stay strong.

My wonderful friend Jen (Jillians mommy) updated the page because it was just to hard for me. Trevors first mibg scan showed a spot, they really thought it was just because his iv was leaking so we rushed down for a repeat and recieved what is potentally devastating news. A spot is lighting up and they think it is on his spine. This has just broken our hearts. We are praying so hard that it is just a mistake and asking all of you to do the same. Trevor has an MRI schedualed for this Wed. at 1:00 We need everyone to pray really hard for our little boy! We are so scared but have decided we will not give up. Trevor loves life and we will fight for him no matter what.

Our neuroblastoma friend Micheal also got an mibg scan that showed uptake on his spine last week. He needs your prayers to. We are all hoping it was just a big week full of scans that were messed up.

Trevor is fighting a nasty cold at the moment. Anesteasia (SP) said they are planning on going through with the scan as long as it dosent get to bad. Otherwise Trevor is busy playing and feeling good. He is the reason i can not let myself dwell on the negative. I have decided we are aloud to have bad moments but i will not allow myself to have a bad day. We will not let neuroblastoma steal our smiles.

I will update with the results as soon as i can.

Love The Greskos

Friday, May 12, 2006 2:24 PM CDT

Hi, it's Jen again. Jackie just called me with the news. The spot is still showing up on the scan. They cannot still be 100% positive that the cancer is back, but they need him to go for a follow-up MRI next week. Jackie and Chris are a wreck right now not knowing what is really going on. The spot may be around his abdomin area.

Jackie will update as soon as she can get past this horrible news she has heard. Please continue to pray for Trevor and his family during this very difficult time.

Jackie, try and have a wonderful mothers day and hang in there Gresko family!

Love to all!!!!

Friday, May 12, 2006 9:12 AM CDT

Hi everyone. This is Jackie's friend Jen. She wanted me to update because she needs to take another wonderful trip back to CHOP this morning. It seems as though Dr. Grupp thinks they had, yet another, bad scan. It was obvious that his IV was leaking the radioactive material during the scan. Trevor's IV was in his arm which was against his body. So, the scan shows that the radioactive material is lighting up on his spine. This normally would mean that this would be an "area of interest" to the doctors. Dr. Grupp cannot tell 100% that it is not the cancer, but he is almost positive that it's just the leaky IV. So, Trevor has to head back to Philly NOW for another MIBG scan.

Jackie is calm because she knows Dr. Grupp is straight forward with her. He does not seem to be concerned, so she is also thinking positive. Jackie will update as soon as she knows something, which will be today.

Keep the prayers coming for our fighter! We love you, Gresko family!!!!

Thursday, May 11, 2006 7:30 PM CDT

It is about 7:30 and still no word on the scan. I fear we have been lost in the shuffle. This is unbearable and almost paralizing. If any of our wonderful nurses see this and have any connections we would love for you to help us out. Please God just let the scan be ok.

I will update as soon as we know.

Love the Greskos

Tuesday, May 9, 2006 1:30 PM CDT

Hello Everyone!

Trevor is doing GREAT! He is keeping us all pretty busy. He has fully mastered his driving skills (on his little hummer) He is a little mad man on it! He likes to scare us by driving it straight at us then turning the wheel at the last second. He has started pedaling his john deer tractor (something he used to think was just to much work). I guess he may just be ready for a bike soon.

We had a busy weekend. Saturday pop pop McFeeley came and picked up me and the kids and we headed to New Jersey to a party at my Aunts house. It was a really nice day. Trevor caught a lizard (it wasnt a salomander) I know we dont have any of those lizards in PA. He wanted to bring it home but with the 2 dogs, bugwhacker, and our very long living sea monkeys that just had more babies I felt we had enough little critters in the house for now.

Sunday was Chris's birthday! HAPPY BIRTHDAY DADDY! Something that makes Chris's birthday extra special is that we found out i was pregnant with Trevor on his birthday 4 years ago. We sorta celebrated Chris's birthday on friday as Trevor declared he did not like secrets and was going to tell daddy what we got him! What a stinker! So i threw together a diner and baked a pretty terrible cake! Oh well its the thought that counts and Daddy was indeed suprised!

So on sunday we headed over to my parents house. They have a pond and a little boat. Chris, Trevor, and me went out on the boat. Tabby stayed on land with Grammy and Grampy. I can not even imagine trying to keep her in a boat. Chris caught 4 fish and Trevor caught 6 I was helping Trevor so although i did alot of work i get no credit in the fish catching department. LOL!!!
It was a really nice time and just what we needed to keep our minds off of the upcoming scans.

Speaking of scans, Trevors scan is on Thurs. May 11th at 1:00 (they bumped us up an hour Arrggg) Tomarrow i will take Trevor to the kop clinic and he will get an iv and injection for the scan. He will also have a CBC (blood work) done.

PLEASE PRAY FOR TREVORS SCANS TO BE CLEAR AND THAT HE HAS HAD A COMPLETE CURE OF NEUROBLASTOMA!!!!!!!!

We should get the results back Thursday evening and i will update as soon as i hear anything!

Thank you all for continuing to pray for Trevor!

Love The Greskos

Wednesday, May 3, 2006 1:31 PM CDT

Yesterday morning mom mom Gresko, me, and the kids set off to chop for Trevors 9 month post transplant appointment with Dr. Grupp. It feels so good to be 9 months out! Way to go Trevor!

We arrived early as planned because we wanted to visit the floor. We visit very rarley as it is quite obvious that Trevor feels very uncomfortable on the floor. I am sure it brings back lots of unpleasant memories and i imagine he is worried he may have to stay there. Trevor got to see one of his very favorite people Sharice (SP) She is amazing and i have to give her so much credit for always finding a way to keep the kids happy, laughing, and very entertained! We were sad that we didnt get to see Trevors primary nurse Tracy but hopefully next week when we are there for the scan we can catch her.

We also got to see so many of our wonderful friends it was like a reunion! When we got up to the floor we spotted Trey and his mommy cruising the halls. Trey is our little friend fighting 2 different types of cancer. He looked awsome and i think him and Tabby may be in love! We saw Tyler and his mom Tammy. Tyler is our buddy in transplant, he was having some eye issues but i think things are looking up and they will be on there way home very soon. We got to see the fantastic Brandis family! Jillian had her mri yesterday and it was all clear! What great news! Trevor was playing with Jillians big brother Brayton They were having a blast! We miss you guys already! Next it was Ruby who is another one of our neuroblastoma buddys. She was in for her mibg injection and her scan is today. We are sending lots of prayers their way for a clear scan. Ruby you looked so good! We also saw Kristen one of our Transplant neighbors! Oh yeah she is also Bruce Springstiens girlfriend! She is doing awsome to and it was so great to see you guys! I am sure i am forgetting someone but as you can tell we really got to see a lot of our friends! It made the day so much nicer!

Once we got to clinic things went very quickly he was called back for weight, blood pressure, & Temp in a matter of minutes. Then just minutes later we were called to the lab for his blood draw. The girl was very good! I often feel like the people in the lab have little compassion. She spoke very nice to Trevor and i think it helped him stay calm. She had to draw 8 viles of blood! Wow thats a lot for a little guy. Most of them are for immune system testing that Dr. Grupp does.

Next Nurse Adam came and told us Dr. Grupp was ready to see us so off we went. I usaully have a very long list of questions ready for him so he asked for it as soon as he came in the room. I was pleased to inform him that i have not one question or concern. He was thrilled because that means Trevor is doing great! Next i said i do have something to discuss but its not really a question. He laughed and said so i guess you have a demand. I told him as long as everything gos good with the scan we want at least 3 weeks off between appointments He said that should not be a problem and said that if we get labs done next week when we go for the iv and injection then we can move to monthly appointments!!!!! YAHOOOOO!!!! I find i have no trouble being pushy with the stress of an up coming scan bearing down on us. Remember we had a weekly appointments up until his last scan when i demanded every other week off.

Trevors labs came back and looked great. Trevors hemiglobin was 11.6 up from 2 weeks ago at 11.1. Trevor has not had an epo shot since April 11th and because his counts looked so good he didnt need one last night either.
The plan is to give the epo on an as needed basis and to continue the blood pressure med for a couple more months and then take him off and see what happens.

Trevor is really feeling great. His eating has really taken off. He is so full of energy. He had a great time at our friend Gavins birthday party on sunday. He was scared of the moonbounce at first but it didnt take him long to get the hang of it. Oh yeah Trevor had another haircut. This time he finally got the mohawk hes been asking for. He looks so cute! I will make sure to post a picture as soon as i can!

Trevors scan is on Thurs May 11th. Please continue to pray for a clear scan and that Trevor remains cancer free forever!!!!!

Love Jackie,Chris,Trevor,&Tabby

Friday, April 28, 2006 2:21 PM CDT

The accutane storm is over!!!! Trevor is back to his sweet little self. Oh how we love having him back. This morning he woke up smiling and wanted to know if i had any dreams last night then went on to tell me all about his. So cute! We played outside this morning building sandcastles and playing pirates! Yesterday although he was still pretty crabby we played with the hose I soaked him good! What sweet revenge (just kidding) he loved every second and then he turned the hose on me and Tabby, we were not nearly as good sports as Trevor was but it gave us all a good laugh!

We have a birthday party to go to on sunday. Trevor is pretty excited. There is going to be a moonbounce there and i am not sure if you remember but that was one of Trevors favorite things he went on in Disney! There is going to be lots of kids there and that is really just what Trevor needs. He is still very shy around other children and always has to keep one eye on me at all times.

Well thats about all thats going on around here. Things are going great and our moods are much improved. Trevor still has plenty of attitude but thats just him and i truley belive his attitude and strong will played a huge part in getting him where he is today! So if he wants to give me heck than ill take it!

Thank you to everyone who checks on Trevor, Please continue to keep him in your prayers!

Have a great weekend!

Love The Greskos

Tuesday, April 25, 2006 2:28 PM CDT

HOORAY HOORAY!!!!

Trevor is finished accutane forever!!! Now we just wait for the nasty stuff towork its way out of his body and Trevor can go right back to being just a regular naughty 3 year old boy instead of out of control and just plain old scary to be around sometimes! When Trevor started accutane we thought it was going to be a breeze, we knew the mood swings are often a symptom but man oh man we never expected them to be as bad as they were. We are thrilled to be done!!!!!

Trevor is doing amazing otherwise! We did try to play outside this morning but everything had him in tears, none of his toys worked the way he wanted them to. LOL. No matter what i did or said i was in trouble so we called it a day and decided a nap was a better idea!
It usually takes about 3 days before he is back to himself so by the weekend we should be able to have some fun again!

Next week Trevor has his 9 month post transplant appointment with Dr. Grupp in philadelphia! He will get alot of blood work done but hopefully all with just one stick! Trevor should actually only have to go every 3 months but because of his kidneys we still have to go everyother week. Some of the doctors say that Trevors kidneys are mad others say they are damaged. All the doctors aggree that he is doing amazing and that they expect this to be a slow healing process.

I hope i did not make this entry sound like we havent been having fun because we are. Trevor was not moody every minute he was on accutane, I think today was just a bad one. Remember, When Trevors Not Happy Nobodys Happy! LOL!!!

Please also remember to pray for Trevors upcoming scan! His scan is on May 11th! Please pray for a clear and normal scan and that Trevor remains cancer free forever!

I will try to update again before the week is out, I plan on my next update to be about all the fun we are having and the great moods we are in!!!!!

Love Always The Greskos

Tuesday, April 25, 2006 2:28 PM CDT

HOORAY HOORAY!!!!

Trevor is finished accutane forever!!! Now we just wait for the nasty stuff towork its way out of his body and Trevor can go right back to being just a regular naughty 3 year old boy instead of out of control and just plain old scary to be around sometimes! When Trevor started accutane we thought it was going to be a breeze, we knew the mood swings are often a symptom but man oh man we never expected them to be as bad as they were. We are thrilled to be done!!!!!

Trevor is doing amazing otherwise! We did try to play outside this morning but everything had him in tears, none of his toys worked the way he wanted them to. LOL. No matter what i did or said i was in trouble so we called it a day and decided a nap was a better idea!
It usually takes about 3 days before he is back to himself so by the weekend we should be able to have some fun again!

Next week Trevor has his 9 month post transplant appointment with Dr. Grupp in philadelphia! He will get alot of blood work done but hopefully all with just one stick! Trevor should actually only have to go every 3 months but because of his kidneys we still have to go everyother week. Some of the doctors say that Trevors kidneys are mad others say they are damaged. All the doctors aggree that he is doing amazing and that they expect this to be a slow healing process.

I hope i did not make this entry sound like we havent been having fun because we are. Trevor was not moody every minute he was on accutane, I think today was just a bad one. Remember, When Trevors Not Happy Nobodys Happy! LOL!!!

Please also remember to pray for Trevors upcoming scan! His scan is on May 11th! Please pray for a clear and normal scan and that Trevor remains cancer free forever!

I will try to update again before the week is out, I plan on my next update to be about all the fun we are having and the great moods we are in!!!!!

Love Always The Greskos

Wednesday, April 19, 2006 2:47 PM CDT

I hope everyone had as nice of an Easter as we did. Trevor was up early and on the hunt for eggs. He was distracted however by his overflowing easter basket and tower of toys. He got some cool new power rangers toys, Trevor is really into the power rangers right now and infact he thinks he is one. He also got a cool sprinkler and lots of candy and other goodies. The easter bunny must have gotten stuck in our window on the way out because we found alot of his cotton tail on our window sill. LOL! Tabby didnt do to bad herself but it seems she only wants whatever Trevor is playing with.

We headed off to Church after the egg hunt was done. Trevor complains that Church is to loud. He says he cant hear anything. Oh well you cant please him all the time. Next it was off to mom mom and pop pops for a fantastic meal. Trevor always loves seeing his cousins Tyler and Alexia! He got to play with them the whole day and seemed to really enjoy himself. Mom mom and pop pop have a little play house in the back yard and aunt christy found Trevor and Alexia in there, Trevor had his pants down and was peeing OPPPPSSSS!!!! Trevors new thing is peeing outside! Luckily Alexia made it out dry and didnt seem to be to disturbed by it! He is so silly!

Trevor had an appointment yesterday and Granny accompanied us. Trevor started to get a headache on the way there but seemed much better once he was out of the car. He had blood work done, Ouch! He did great. His count were great so we didnt need to give an epo shot which makes me and Chris very happy. Amazingly he is still weighing in at 28.2 pounds. I was shocked because he has not been eating great since we started accutane again. This round has been the toughest yet. Trevor is really emotional, spends much of the day crying over something or other, Although i hate to say it he is even sometimes just plain old mean. I know this is just the medicine and although he has had his fair share of time outs we do cut him breaks. His skin is really taking a beating and to make matters worse he ran straight into the deck railings with his head last night. It doesnt take much to crack your skin when your on accutane so im sure you can imagine what his forhead looks like. His pee pee is also red again so now we are certain it was the accutane and the doctors aggree.
We will finish up on monday night, This is Trevors final round and we will be more than happy to see it go!

We have been playing outside as much as we can. Today we set up the sprinkler and we had a blast. Tabby hated it! Trevor didnt even cry when water got in his face. We are going to try and get daddy when he gets home.

Tommarow we have a fishing trip planned with uncle Frankie. Trevor is really excited. We went out last night and got all the gear we needed (Uhhhh, I think) LOL! Remember Daddy is a hunter and mommy is a shopper so we really did not know what the heck we were buying so i let my shopping instinct take over and we got one of everything! Just kidding! Ill make sure to take lots of pictures though!

Wow this entry is long but before i go i would like to ask everyone to pray for the Zoltnicki family. They lost there beautiful daughter Navada on Easter sunday. Navada went to Daneville hospital but we met them at Chop when they came for their stem cell harvest. Navada also had neuroblastoma and was doing great on friday when i had last checked on her. I am not sure if anyone knows exactly what happened yet but they are in need of prayers for sure.

Also Trevors next scan is on May 11th so please start praying for a clear scan. It means the world to us!

Love Always
Jackie,Chris,Trevor,&Tabby

Saturday, April 15, 2006 3:27 PM CDT

HAPPY EASTER!!!!

What a wonderful week we had. The weather was beautiful and we spent lots of time outside. Trevor dug with his dump trucks and steam shovels. He has been having so much fun riding on his power motorcycle. This was his very first ride on vehicle (Trevor has lots)!!!! He has a little trouble steering the bigger ones. He did flip it 2 times but just got right back on both times.

Yesterday Trevors nanny and pop pop came to visit. Unfortunatly Trevor got a migraine. Uhgggg!!!!!!
He ended up throwing up and then falling asleep for about 4 hours. He was bummed out when he woke up, He was hoping to spend the whole day visiting and playing. Accutane can cause brain swelling so you always have to keep that in mind when someone gets headaches on accutane. Because this is his 6th round and he has had headaches from it so many times and we have spoken to the doctors about it many times
we know the signs of that and Trevor does not have them he just gets bad headaches. Trevor is on day 5 of this round and has a total of 14 days. Come on day 14 we are ready for you!!!!! Trevors lips are already craking up a storm and his emotions are running me ragid!!!! Accutane is definetly harder than i had thought it would be!!!

Bugwhacker is doing well and seems to like her new Daddy! (Trevor).

Have a wonderful Easter!!!!!

Love The Greskos

Monday, April 10, 2006 2:53 PM CDT

I was just boiling some eggs and i started to get into the Easter spirit. Trevor seems slightly confused over the idea that a giant rabbit is going to come and give him an Easter basket. He asked me in a scared voice is the Easter bunny going to steal food from our house. I am not sure how he comes up with his questions. When i said that the Easter bunny usually brings candy and sometimes little toys he replied "Candy, Not more candy I tired of doing that"! I tired of doing that is one of Trevors most popular punch lines. (So silly).

There are always so many silly things flying out of Trevors mouth but for some reason when i get on to update i cant remember them. But one thing i do remember was the other day i was in the kitchen and Trevor ran over to me and said "OH NO Im turning into Stich" (one of his favorite disney characters) I said no your not. Trevor Said "Look my claws are starting to grow" Trevors nails were in need of a trim but i wouldnt say they long enough to call them claws.

Yesterday Trevor helped me and Chris outside. He was raking and collecting rocks, he had ants crawling on him, He said that they were snuggling him. He is doing so well!

On Sunday Trevor even went to sunday school the only catch was i had to go to! He was crying and wouldnt let me leave so i just stayed. He did play with the other kids and had fun He just made sure to keep his eye on me the whole time.

Trevor starts his 6th and final round of Accutane tommorow.
We are all looking forward to be finished with Accutane. It is so hard on his skin, takes a huge emotional toll on him, and sometimes gives him headaches.

Tabby is doing great to. She has so much attitude for such a little girl. What can i say my kids must get their attitudes from their father! LOL!

Well it looks like its going to be a beautiful week so hopefully everybody gets to enjoy it!

Love The Greskos

Tuesday, April 4, 2006 2:41 PM CDT

Today was another great clinic appointment. All of Trevors counts were great. The doctor was very pleased. He is getting close to being a heavy weight at 28.2 pounds LOL!
Although its still skinny it is his record high! He also lucked out and doesnt need his epogen shot tonight. His hemiglobin was high enough that we can skip it again. Yippeee!!! He will get the shot next week and then follow up the following week for counts.

Today we were very pleased to see Kathy (the women who normally draws Tevors blood) Last time there was someone else filling in and it required 3 sticks and alot of vein fishing. UHGGGG I am getting quesy just thinking about it. So today the stick went much smoother and although sticks are never painless Trevor was a trooper.

Oh how could i forget my children were complete maniacs today! Tabitha was running as fast as she could. Trevor was taking a shower in the sink. Really he was washing his hair, face , and just about everything else. The wonderful nurses gave me a hand as i was not sure which direction to run in. There was also a film crew there today taping something for the childrens miracle network. There was signs asking people to be quite uhhhh ok! Like a childrens doctors office is really going to quite. Trevor did enjoy watching it all though!

The zoo was so nice. It was not very crowded and the weather couldnt have been better. Trevors favorite was the rino. The big cats were not there because they are remodeling their house. Its a good excuse to go back soon.

We also have a new addition to our family! Mom mom and Pop pop took Trevor out and brought home his very own fish. Trevor has renamed it several times, some of its names were favorite fish, steam shovel, lawn mower, Ball head, and mermaid but the name that he calls it most of the time is bug whacker. Very strange name for a fish and i am very glad we did not let him help pick out his baby sisters name.

Also some good news about Jillian! She is out of the hospital and gearing up for her very last round of chemo!!!! Go Jillian!!!!

Thanks for dropping in!!!
Love Jackie

Tuesday, April 4, 2006 2:41 PM CDT

Today was another great clinic appointment. All of Trevors counts were great. The doctor was very pleased. He is getting close to being a heavy weight at 28.2 pounds LOL!
Although its still skinny it is his record high! He also lucked out and doesnt need his epogen shot tonight. His hemiglobin was high enough that we can skip it again. Yippeee!!! He will get the shot next week and then follow up the following week for counts.

Today we were very pleased to see Kathy (the women who normally draws Tevors blood) Last time there was someone else filling in and it required 3 sticks and alot of vein fishing. UHGGGG I am getting quesy just thinking about it. So today the stick went much smoother and although sticks are never painless Trevor was a trooper.

Oh how could i forget my children were complete maniacs today! Tabitha was running as fast as she could. Trevor was taking a shower in the sink. Really he was washing his hair, face , and just about everything else. The wonderful nurses gave me a hand as i was not sure which direction to run in. There was also a film crew there today taping something for the childrens miracle network. There was signs asking people to be quite uhhhh ok! Like a childrens doctors office is really going to quite. Trevor did enjoy watching it all though!

The zoo was so nice. It was not very crowded and the weather couldnt have been better. Trevors favorite was the rino. The big cats were not there because they are remodeling their house. Its a good excuse to go back soon.

We also have a new addition to our family! Mom mom and Pop pop took Trevor out and brought home his very own fish. Trevor has renamed it several times, some of its names were favorite fish, steam shovel, lawn mower, Ball head, and mermaid but the name that he calls it most of the time is bug whacker. Very strange name for a fish and i am very glad we did not let him help pick out his baby sisters name.

Also some good news about Jillian! She is out of the hospital and gearing up for her very last round of chemo!!!! Go Jillian!!!!

Thanks for dropping in!!!
Love Jackie

Wednesday, March 29, 2006 2:17 PM CST

I finally added new pictures!!! Make sure to check them out. I want to change the picture on the home page but i need a scanner to do it so next time i go over to mom moms house ill change that one to.

The kids had a great time at nanny and pop pops house. They were spoiled rotten (of course). Although i missed the kids Chris and I put in a new kitchen floor so we kept very busy. We did go out for drinks (just what we needed) both friday and saturday. I was amazed how well Trevor did being away from me (he tends to be a little clingy) I was so happy to hear about all the fun things he got to do and also that he is becoming more and more independent.

Today was beautiful so I took the kids to french creek. Trevor loves the play ground there. There were a few other kids his age and he took a cew from them and before i knew it he was climbing up the big sliding board all by himself (something he typically would not do with out me holding his hand)I held my breath each time and told myself how he is finally doing what he should be for his age so I should calm down. It is great to see him bloosom. He also had a blast throwing rocks in the lake, The geese thought he was feeding them and he thought it was hysterical.

Tommarrow morning the kids and I are off to the philadelphia zoo to enjoy the nice weather and the animals.

Trevor finished his 5th round of accutane monday evening. His face took the worst beating as of yet. It is very chapped! Trevor will return to kop clinic next tuesday.


Please send prayers to Jillian, She has a fever and is stuck at chop!

Love Jackie,Chris,Trevor,&Tabby

Wednesday, March 22, 2006 1:58 PM CST

I know it is not halloween but Trevor loves scarey stuff so i thought it would be fun!!!!

Trevors appointment yesterday went great. All of his counts looked wonderful so of course i feel much better to now. They did however have a very hard time drawing Trevors blood and he had to be stuck more times than i care to mention. Our friend Abigails mom (Karen) calls them VAMPIRES! I AGREE!!!! He took it like a man though, He always does.

Trevors weight was down a little more which is not a suprise since the other week when he was sick he barely ate enough to nurish a mouse. He has had ongoing pee pee issues for some time. We think the accutane is making his skin very sensitive and thus the sore weenie. (sorry i try to use the most modest words).
We are going to pay more attention during his next round of accutane so we can say for sure if that is the culprit or not. Trevor will be done his 5th round of accutane on monday evening and then get 14 days off. But all in all we couldnt be happier with how well Trevor is doing.

Pop pop and Nanny Mcfeeley are bravely taking both kids for the weekend. Trevor is excited and told me he is not going to miss me at all. He has such a way with words. Since i will have some free time i promise to post new pictures. Thank you guys in advance and good luck!!!!

My first entry didnt post and this one seems so much shorter but i cant think of anything else.

Love Always
Jackie,Chris,Trevor,&Tabby

P.S. If Mike Dougherty from Chop is reading this I just wanted to say hi!!! Hope To run into you someday soon but not at chop! Thank you for everything!

Saturday, March 18, 2006 2:39 PM CST

OPPS! Only 1 day late. Well i hope everyone enjoyed St. Patricks Day anyway!

Not to much is going on around here. We went and got family pictures thursday night. Most of them turned out great. We have been waiting so long to get these pictures, i guess i kind of went overboard. Chris was in (Sticker Shock) for about 24 hours. I think he has come to terms with it now. LOL!!!

Trevor is doing very good. He is still on round 5 of accutane. I guess he is a little more emotional. His lips havent started to peel to badley yet, so probably in another day or 2 they will be hurting. Trevor has an appointment at the king of prussia clinic on tuesday for blood counts. I of course am hoping for only good news and will post again after the appointment.

I got a call yesterday letting me know Trevors next mibg scan will be on May 11th. Please start the prays in advance. I am sure i do not need to mention how much i dread these scans. I am trying to look at it as 1 step closer to putting cancer behind us.

I also need to ask for prays for our friend Tyler. His headaches are gone (great news)! He was getting admitted for transplant and he got a fever which has postponed transplant. Tammy (Tylers mom) is great, and like any other mom is worried. So lets send some (no more fever) prays their way so they can get this over with.

Well thats about all for now
Love The Greskos

Wednesday, March 15, 2006 12:55 AM CST

What a nice change it was to have a few beautiful days!!!
Unfortunatly it ended up raining on sunday (Tabbys birthday party) but we ended up having a wonderful time anyhow. She was spoiled with presents (of course). I have so many cute pictures of the kids and i promise to get them posted as soon as i get a free moment. Speaking of free time, my little crew has been keeping me busy. Sibling rivalry (SP) has kicked in to high gear and although the two of them are so in love with one another i find my self breaking up fights left and right. Dont worry to much about Tabby she is taking care of her self (remember Trevor only has a few pounds on her)!!!

Monday was beautiful so we spent the better part of the day playing outside. Trevor had a blast playing with some of his christmas presents that had been put away for warmer weather. He played T-Ball. He was very good! I had a good workout chasing the ball. He rode his scooter. We got to go for a nice walk. I cant wait for more nice weather.

Thursday night we are going to get family pictures taken. I got us cordinating outfits!! I was so excited i came home and laid out the outfits for Chris. He was much less thrilled than me. I love tourchering men!!!!

Trevor started round 5 of accutane on Tuesday. I was shocked to hear him tell me he had a headache already this morning. He has only gotten 3 doses so far. The headache passed quickly and just seems to be one of the side affects Trevor gets. His dose was increased, I assume because his weight has increased. He now takes 1 pill in the morning and 2 at night. It is amazing what a difficult time the little girls are having getting this drug. The have to get id cards and pregnancy tests done prior to each round. I mean come on doesnt anyone have anything better to do with their time than test a 3 year old child for pregnancy? And it adds insult to injury considering our children are almost 100% sterile. Oh well rules and regulation.

I have a very important pray request for my little buddy Trey. He was diagnosed last march with a rare brain tumor called Choroid plexus carcinoma. Trey recently had an mri done to see how his tumors were responding when another tumor was found but not in his brain. The found a large tumor in his abdomin that at first looked like neuroblastoma but the doctors are leading toward another cancer called Adrenal cortical carcinoma. They feel he may have a defect in a gene causing him to get multiple cancers. Please keep the Davis family in your prays as this is such a difficult time for them. If you would like to stop by his page and give them words of encouragement you can visit pa trey.

Thank you all for stopping in to check on us. We greatly appreciate your continued prays for Trevor!!!!

Love always
The Greskos

Friday, March 10, 2006 1:11 PM CST

Our little Tabby is 1 year old today!!!
She had her 1 year checkup this morning. She had to get 4 shots (ouch). Trevor was excited for the big event but once it came he said "that made me feel sad" what a sweet brother. Tabby is 20 pounds 6 ounces. Trevor better put some meat on his bones because shes catching up fast.

Trevor was flirting with a low grade fever all week but this morning he had a normal temp and seems to feel much better. We are going to try and take it easy with his activities a little until he is over this virus.

Trevor has discovered the word nervous and uses it all the time. On the way to Tabbys appointment he said "This is making me feel really nervous" He is so silly.

I hope everyone enjoys the beautiful weather!!!

Love The Greskos

Tuesday, March 7, 2006 2:38 PM CST

Today Trevor had an appointment at the king of prussia clinic.

He was weighed in as usual and was down slightly to 27.28 pounds from 27.9. I have not been chasing him around as much with food as i usually do. I suppose i will start again. Next came the temperature and uh oh i was shocked to hear he was running a low grade temp of 99.5. He has been over his cold for a few days but started having a little cough yesterday. Looks like he caught another bug.
Ok so now on to blood pressure, well it wasnt normal either this time it was a little low. This is probably a good sign because it means the very little blood pressure medicine he is on might be too much and hopefully he will soon be off the medicine for good. For now he will continue taking it and we will see what his pressure is in 2 weeks.

His blood counts were lower than they had been but were all still in the normal range. This is normal to see when you have a virus so i was told not to worry. He will recive an epogen shot tonight and then again next tuesday. They want to give his hemiglobin a little boost. It was 10.4 up from 10.3 2 weeks ago. He had been off the shot for a month but his kidneys couldnt keep up. I think he will probably only get the shot every 3 weeks once we get his hemiglobin where we want it. So daddy if you are reading this you get to have the fun of giving a shot tonight. I am sure most of you know that i cannot give Trevor his shots. I panic!!!! I do the holding and daddy gives the shot. Thank you daddy!!!!

Trevor was a little crabby this morning, I guess that should have tipped me off about the fever but it is very hectic to get the 2 little ones out of the house on time. For the most part though he is acting like he feels great. He played a fun game of kick ball at clinic with granny (my mom). He still was giving me attitude, telling the nurse practitioner about how mad he was at his mommy (i am still not sure why). Trevor must have went pee a million times while we were there today. They have 2 toilets in the bathroom, a regular one and one that is just his size. He loves it!!! He thinks it is the coolest thing and wants one at home.

We are gearing up for Tabbys 1st birthday. She turns 1 on friday. We are having a little party on sunday. Tabby also has a 1 year check up on friday and Trevor is very excited that he gets to come and see Tabby get her shots.

Well i guess thats about it!

Thank you all for your prayers, It means the world to us!!!

Love Jackie

Friday, March 3, 2006 12:16 AM CST

Well its been an exciting week and thankfully Trevor had nothing to do with it.

Although we thought Tabbys cold was going away like the rest of ours Thursday morning she woke up barking like a seal. So off to the doctors we went. Trevor couldnt have been happier to acompany us on a trip to the doctors that wasnt for him. The doctor said that Tabby has a little Croop (SP). They said there was nothing they could do for her and if she continued to (bark) We should put her in the bathroom and run the shower or take he outside. Funny how strange this method of treatment sounds to two parents who have seen the forfront of modern medicine. Chris was even wondering if i was losing my mind using words like barking and telling him to take his daughter out in the fridged temperatures. I think he was wondering if i had Tabby confused with our dog pixie.
However i am happy to report that Tabby seems to feel a little better today and no barking.

I also got a call from chris today telling me that his company Dana corp. filed for chapter 11 this morning. FUN!!!
We have no idea what this means for us. Although we are concerned about the financial strain this would put on us we are mostly worried about health insurance (something we cannot live without). So for now it is wait and see.

I cant help but think about how unimportant our worries really are though. Our friend Tyler who has ALL and recently relapsed was just given the great news that he could move on to transplant. He then started having very bad headaches and an mri showed that a clot may be a cause. He is currently having more tests done. It is very important for Tyler to get his transplant so i would like to ask everyone to pray for Tyler and the Lausten family.
Tyler We Know You Can Do It!!!!!

Ok so now an update on Trevor. Trevor is doing great!!!
He is very naughty (we love it) He is on a break from accutane. I am hoping his lips heal soon so i can take the kids for some pictures. He is so hyper and needs little to no sleep to maintain his energy. His eating is great.

I am going to have to cut this short he is climbing on a chair and i dont want him to wake Tabby.

Love Jackie

Saturday, February 25, 2006 2:31 PM CST

Yuck!!!

Our entire family has a nasty cold. Trevor is dealing with it pretty good except he has forgotten how to blow his nose. I keep telling him how but its just not working. Oh well. Tabby is pretty uncomfortable she has been waking up from her nap because of her stuffed nose.

Trevor has also had a couple headaches in the past few days. They are from the accutane. He will be done this round on monday night. He is doing very well other than the cold. He is also still using the potty. Wooo Hooo!!
Thats my big boy!!!

Here is a funny little story. On friday Trevor was eating his crumb topped doughnuts when Tabby reached over and started stealing the crumbs and eating them. Trevor yelled that they were his. I went and got Tabby a plate of crumbs for her and Trevor started eating all of her crumbs then he looks at me and says "Look mommy im sharing, AWWWWW isnt that nice". Funny how when he is stealing her food he gives himself credit for sharing.

Well there isnt much else going on around here and hopefully it stays that way.

Love The Greskos

TREVOR LOVES STITCH!!!

Wednesday, February 22, 2006 12:13 AM CST

Yesterdays appointment was not what i had hoped for. I dont want to scare anybody because it wasnt horrible. When we arrived at clinic Trevor had his blood pressure checked, it was 125/65 (yikes) a little to high for a boy his age. His hemiglobin was down to 10.3 from 11.7 two weeks ago. So although his kidney functions are almost back to normal (yippee) It seems there not there yet and he was put back on his blood pressure medicine and was given an epogin shot to boost those blood cells. Luckily we do not have to give him the shot again until at least our next appointment which is not for 2 weeks (yipee again).

Trevors lips are once again taking a beating from the accutane. He will finish this round on monday evening and then get a 14 day break. Trevor continues to steadily gain weight and is now a whopping 27.9 pounds (horay)!!!

Trevors is such a little tropper. He is so tired of all of the pokes at the doctors. I was alittle over emotional about the news at the clinic yesterday. I usually try to wait till im home to cry but it just gets to me. I am so grateful to have a cancer free child and i know this kidney thing will get better in time it just breaks my heart every time he cries.

Other than that Trevor feels great and is a wild man!
Thank you for all of your support and prayers!
Love The Greskos

Trevor this is for you buddy!

Animations provided by MySpaceGraphicsandAnimations.com

Sunday, February 19, 2006 3:30 PM CST

Today was a very big day for both Tabitha and Trevor. Tabitha was finally baptised this morning. She looked absolutly adorable and to my amazment sat through the entire service without fussing much at all. She also said another new word she said "Jackie". Thats right not mama or mommy but Jackie. I am sure you are all wondering if i was hearing things, but i assure you there were many witnesses.

I dropped Trevor off at church at 9:00 this morning for his first day of Sunday school. I was nervous and he looked very scared at first. A wonderful friend of ours who is also a sunday school teacher for the older children sat with him so i felt much better. (Thanks again Libby)!!!
He ended up having a great time and cant wait to go back.

Trevor has been wearing his big boy undies all week. He did end up peeing in his pull up once today but it was a long busy day so who could blame him. We went over to mom mom and pop pops for lunch after church. (Thank you again for lunch, It was great)!!! Trevor got to play with his cousins Alexia and Tyler. They had alot of fun. Trevor was so busy playing he didnt want to take potty breaks. I thought he was just going in his pull up but when we got home he took off for the bathroom to pee. Turns out the pull up was still dry. GO TREVOR!!!!!

Trevor is doing great. He is eating well, very energetic, and looking great. It is so great to get to see him doing all the things that 3 year old boys should do.

I do have a little bit of upsetting news. We did not win the powerball. What a bummer! When i buy the tickets i dont just think i might win, i think i am really going to win. Oh well maybe next time. {Dad & Jeanne you guys better not be holding out on me).

I am sure you are all wondering if Chris pulled through on the dairy queen cake and the answere is yes and it was very good!

Trevor has a clinic appointment on tuesday at king of prussia so i will update after. We are hoping everything looks just as good if not better than before!

Love Jackie,Chris,Trevor,&Tabby

Tuesday, February 14, 2006 1:21 PM CST

HAPPY VALENTINES DAY!!!!!!!!!!!!!!

I hope all the little ones got to enjoy the snow. Trevor played outside for alittle but when the snow touched his skin he decided he didnt like that anymore.

There really isnt to much going on around here. As far as i know Trevor does not need to return to the doctors until next week, which is great considering he is about as sick and tired of being poked at as he can get. He Started round 4 of accutane this morning which means the mood swings are not to far away either. After this round he will only have two to go. Other than accutane Trevor is off all other medicine Whooo hooo!!!!

We have decided to enroll Trevor in preschool. Enrollment is tomarrow but he wont start until the end of summer or early fall. He is excited and has been working on going on the potty again. Hes doing really good, he has been wearing his big boy underware for 2 days now. Other than that hes kind of just being bad. I dont really know whats gotten into him (other than the fact we spoiled him rotten all year). Oh well what are you going to do i'll take bad over cancer any day.

Tabby is talking a little, she says "hi" so cute. Kisses everything she can get her lips on and is so in love with her big brother. She is getting Baptised on sunday. I am not sure what to put her in, I think she may be a little to big for the traditional outfit.

Oh yeah apparently Trevor has an imaginary friend. A girl of course. He says she is prettier than me (thank you Trevor) He said he kisses her. When i asked what her name was he said 3 eyed girl (sounds like a real cutie) LOL!

Well i guess thats it for now. I hope everyone has a nice valentines. I would be happy with just a dairy queen cake myself. HINT HINT Chris!!!

Love The Greskos

Wednesday, February 8, 2006 4:29 PM CST

Clear!!! Clear!!! Clear!!!!

We just got home to the most wonderful message! Trevors scan was completly normal and he remains cancer free. We are so thrilled! It was a very long day. Trevor didnt get his scan till about 3:00 and then he woke up during it even though he had general anestia (I didnt know that was possible) So they had to start it over.

I would also like to tell everyone the good news we got at clinic yesterday. Trevors blood pressure and hemiglobin remain normal without the medicine. So hopefully those kidneys are starting to bounce back. Also Trevor is now 27 and a half pounds and 3 feet 2.6 inches tall!

Well we have to celebrate so i will update again later!

Thank you to everyone who is praying for our little boy!
Words can not express our gratitude or happiness!!!

Love The Greskos

Sunday, February 5, 2006 1:24 PM CST

One year ago today we were on are way to the emergency room and although we were a bit scared we never even imagined that we were about to begin a journey through childhood cancer. It took many months to come to terms with the fact that this was really happening. I kept thinking and praying everynight that i would wake up and it would be febuary 5th again, I wished that this was just a terrible nightmare that wouldnt go away. With each day i learned how strong Trevor was and finally decided that if i expect him to fight than id better get a more positive outlook as well. If anybody can do it than he sure can. I know in my heart he is going to be just fine, i just wish there was a way to make the fear go away but i know only time can do that.

Another thing that i learned last year was how blind i was to childhood cancer. It is something you do not hear about very often and surely do not see on a regular basis but it is there and very significant. We have met so many children with all types of cancer. The oncology floor gets so full that children have to stay on other floors, the clinic is busting at the seems with children. It is very sad. I would like to list a few of the children that have touched our lives this year and ask that you keep them and there familys in your prays.
Jillian, Catherine, Michael, Trey, Tyler, Angel Emily, Kayleigh, Angel Ryan, Luke, Abigail, Grace, Lyrissa, Angel Anthony W., Angel Anthony D., Navada, Kristen, Angel Andrew, Ruby, Emmalee, Angel Robert, Angel Shelly, Ava, Angel Isabel.
Im sorry if i forget anybody, I am sure as soon as i log of it will pop into my head.

Well on a very happy note Trevor had a wonderful morning!!!
We went to church and as we promised him we let him play in the nursey instead of sitting with us. Well he is very much a ladies man. I was a little nervous about leaving him because he is a little bit socially challenged but he did just fine. Jillian you might want to cover your ears. I think Trevor added 2 or 3 more girlfriends to his list today. He had a blast. When church was over we stayed for a super bowl lunch which gave Trevor a chance to chase all of his new ladies around. He really likes girls! He was petting one little girls hair(thats right petting her). Hugging any girl he could get his hands on. And then of course cried when it was time to go.

Other than that everything is about the same. Trevor is doing really well. Him and Tabby keep each other very busy. He has been going on the potty again but its kind of an on off thing. One day hes into it the next day he wants nothing to do with it. I guess i have trouble pushing him because i feel i have to push all the time and the potty thing will happen when it happens.

Ok so now i am again going to ask for your prayers!
Trevors scan is on Wed. Febuary 8th at 12:30.
Please Pray for a clear and normal scan and that Trevor remains cancer free forever!
I will update again wed. evening when i get the results.

Thank You!

Love Jackie,Chris,Trevor,&Tabby

Wednesday, February 1, 2006 12:06 AM CST

I hope everyone enjoyed the nice weather. Wow i wish it could be like this every winter.

Things around here have been great. Trevor had a nice weekend. He got to visit with his Great Grandmom Mcfeeley. They had fun shooting monsters (one of Trevors favorite past times) and playing. Heres a funny little story about church on sunday. Trevor was acting up so i leaned over and said if he kept being bad he would have to go to the nursery and hang out with the other kids instead of me. Well lets just say he didnt know that was an option. He started wailing about how he wanted to go play with the kids and wheres the nursery. So i promised him i would let him do that this weekend.

Trevor also got to take a trip with daddy to toysrus. He bought some video games and some robot arm that he uses to pick things up with. Although thrilled with his new purchases he spent the next few hours crying over what he did not buy.

Yesterday Trevor had a clinic appointment downtown. His counts were great. Dr. Grupp decided we would hold off on his shot he gets to make red blood cells, He cant say for sure whether Trevor needs it anymore or not and the only way to find out is to stop giving it. He will also get his last blood pressure pill and sodium bycarb on thursday. As with the shot it is a wait and see game we can only find out if he still needs them by stopping them all together. I guess i am a little nervous about the blood pressure. I am sure i will end up buying my own cuff by the end of the week. Trevor took his last dose of bactrim last night (whooo hooo) He is done with that one for good! He also finished his 3rd round of accutane yesterday and now has only 3 to go.

We were hoping to take Trevor to the monster jam (monster truck show) on the 11th. I spoke with Dr. Grupp about it and he felt it was not the best idea. The trucks are very loud and Trevor is kind of young to expect him to wear ear protection for the whole show. His hearing was already damaged from the chemo and we wouldnt want to do further damage. So i am sure we can find something else thats just as fun.

Please dont forget to pray for Trevors upcoming scan. It is wed. Feb. 8th. at 12:30. Remember to pray for a clear and normal scan. Thank you all in advance.

Well Tabby is pretty upset so i have to cut this one short. I will try to update again this weekend.

Love Always,
The Greskos

Wednesday, January 25, 2006 1:18 PM CST

There really hasnt been to much to report. Trevor is doing great. He is very naughty but feeling good. He seems to get very moody when he is on accutane. Today is day 9 and he gets a total of 14 days, so hes a little more than half done this round. Trevor had an appointment at the kop clinic yesterday and all of his blood counts looked great. His kidney funtions have stayed the same. Although we always hope to see the kidney problems go away over night it is just not one of those things.

Next tuesday Trevor has an appointment downtown with Dr. Grupp. Tuesday marks his 6 month post transplant (the 2nd transplant) Wow i cant even begin to tell you how good that sounds. He will get immune system testing done, this is to check his bodies response to the T cells he got back. He will also get a vaccine along with routine labs and a shot of epogen for his kidneys. Sounds like fun. Trevor is about at his wits end with all the pokes hes been getting lately. It breaks my heart. I just hope he can start to get more of a break between appointments.

Also we had thought Trevor would be getting his mibg scan next wed. but that feel through when they couldnt get him a slot with anestia. So Tues. Feb. 7th he will go to kop clinic for his injection then the following day wed. feb.8th he will have his scan. Please pray for Trevor to have a clear scan and that he has had a complete cure of neuroblastoma. These scans are so important they can change your life in an instant. They stress me out bad. I know it is something that we have to do but i would rather take him and run in the other direction. Just thinking about scans i kind of lose my breath like i am being smoothered. Sorry i know that sounds strange but it is just how it is.

Trevor will also stop taking bactrum after next tues. This is an antibiotic he has been on since diagnosis. It was given to him to protect him from phemonia. So its great to finally be getting rid of it. And we are getting very close to Feb. 5th. which marks one year since diagnosis. Trevor has come such a long way and makes us so proud.

I would also like you to say prays for Jillian, Michael, and Navada. They all have scans coming up as well. Jillian will have her mri this fri. Michael will have his mibg scan feb. 7th. and i havent heard the date of navadas scan but i think it is soon.

Thank you all for checking in and keeping Trevor in your prayers.

Love always The Greskos

Wednesday, January 18, 2006 1:47 PM CST

I wanted to give a quick update on Trevor. He had an appointment tuesday at the king of prussia clinic. He is doing great. His hemiglobin was 11.0 (great and this means he still only needs one shot a week) White blood count was 9.6 (great) platlettes 233 (wonderful). His anc was somewhere in the 4000's so that is great to. He has gained a little weight and is now 26.84 pounds. The numbers they look at for his kidney functions looked slightly better. I dont think we are quite at the point to jump the gun and say they are healing but who knows. All the Doctors are just very happy they have not gotten worse. His blood pressure is still doing very well with the help of the meds of course.

We were able to restart Trevors accutane. This makes me happy. This is the high dose acne medicine that helps bind to microscopic neuroblastoma cells and cause their death. The doctors assured me that it is not as important as i think it is but i still like him on it. This is his 3rd round and he will get a total of 6. He will return to clinic next week for blood counts.

There was some mess up in the schedualing department so Trevors nurse practitioner is working to get his next scan schedualed. I really hate scans, they are so scary. Please pray for Trevor to have had a complete cure of neuroblastoma and for all of his scans to be clear. I will let everyone know when i find out the date of the scan.

Trevor is obsessed with going back to disney. He talks about it all the time. Hopefully this fall we can swing another trip. He is a little wild man. He feels so good. Him and Tabby spent the morning playing with little people and just being silly. Trevor is now at the age that he likes to run me and Tabbys little people over with his cars and make them get eatin by his dinosaurs.

I would also like everyone to say prayers for our buddy Tyler Lausten, He has lekemia and has relaped on treatment. Hes a tough boy and we know hes gonna be fine but extra prayers always help.

Thank you everybody for your continued prayers!
Love The Greskos

Saturday, January 14, 2006 6:12 PM CST

NEW PICTURES!!!!

We are home from a fantastic vacation! We stayed at animal kingdom lodge. We had a room with a great view. We could watch all the animals straight from our balcony. We were also right next door to mom mom and pop pop.

The kids did great on the plane ride. We headed off to magic kingdom on monday. We were still not sure if we were supposed to wait in line or go in the exit. But once we got used to budging (a very nice bonus of a make a wish vacation) we got very good at it. We took Trevor on a few things that totally terrified him. OPPS! Some space ship thing that Stitch spits water at you and stuff. Trevor was screaming get me out of this place. The 3D shows were not his favorite either. We did a Character breakfast with Pooh and friends, This is when our camera shy Trevor turned into a complete cheese. Aunt Christy watch out Trevor loves getting his pictures taken now.

Tuesday we did animal kingdom park. He met alot more characters. We did the safarie, Im drawing a blank. Oh yeah another 3D nightmare. On the way back to the hotel we got held up in alot of traffic because of the police stand off. I swear adventure finds us wherever we are.

Wednesday was the best, we went to gatorLand. Trevor Wrestled a gator (dont forget to check out the pictures) He also held a gator and a big old snake. He loved it. Tabby even wrestled a gator! We feed the gators hotdogs and alot of them at that. We went on a little train ride. We all really liked gatorland. We even got to go in the swimming pool.

Thursday was seaworld. Trevor feed and petted stingrays and wait even better dolphins. The trainer even let him come along when he fed them so Trevor could get to see them more. He loved every minute of it except when they splashed him. We went to some neat shows including shamu. And my favorite part was when Trevor went on the moonbounce. He was not exactly sure what to do but he really had fun.

Friday was another great day at magic kingdom. Tabitha was such a good girl. She just sat in the stroller and never really fussed. I am pretty sure if she ever sees a stroller again it will be to soon. We had an amazing time! I cant wait till we can go back!

Well i am sure i am forgetting a million things but we have a lot of unpacking to do, and our bodies our so sore from all the walking.

Love The Greskos

Saturday, January 14, 2006 6:12 PM CST

NEW PICTURES!!!!

We are home from a fantastic vacation! We stayed at animal kingdom lodge. We had a room with a great view. We could watch all the animals straight from our balcony. We were also right next door to mom mom and pop pop.

The kids did great on the plane ride. We headed off to magic kingdom on monday. We were still not sure if we were supposed to wait in line or go in the exit. But once we got used to budging (a very nice bonus of a make a wish vacation) we got very good at it. We took Trevor on a few things that totally terrified him. OPPS! Some space ship thing that Stitch spits water at you and stuff. Trevor was screaming get me out of this place. The 3D shows were not his favorite either. We did a Character breakfast with Pooh and friends, This is when our camera shy Trevor turned into a complete cheese. Aunt Christy watch out Trevor loves getting his pictures taken now.

Tuesday we did animal kingdom park. He met alot more characters. We did the safarie, Im drawing a blank. Oh yeah another 3D nightmare. On the way back to the hotel we got held up in alot of traffic because of the police stand off. I swear adventure finds us wherever we are.

Wednesday was the best, we went to gatorLand. Trevor Wrestled a gator (dont forget to check out the pictures) He also held a gator and a big old snake. He loved it. Tabby even wrestled a gator! We feed the gators hotdogs and alot of them at that. We went on a little train ride. We all really liked gatorland. We even got to go in the swimming pool.

Thursday was seaworld. Trevor feed and petted stingrays and wait even better dolphins. The trainer even let him come along when he fed them so Trevor could get to see them more. He loved every minute of it except when they splashed him. We went to some neat shows including shamu. And my favorite part was when Trevor went on the moonbounce. He was not exactly sure what to do but he really had fun.

Friday was another great day at magic kingdom. Tabitha was such a good girl. She just sat in the stroller and never really fussed. I am pretty sure if she ever sees a stroller again it will be to soon. We had an amazing time! I cant wait till we can go back!

Well i am sure i am forgetting a million things but we have a lot of unpacking to do, and our bodies our so sore from all the walking.

Love The Greskos

Friday, January 6, 2006 1:10 PM CST

I just wanted to drop a quick note before we leave for disney. We leave on sunday morning so i am wondering why i have not even begun to pack yet. Oh well along with so many things we learned last year speed packing was one of them so im sure we will be fine.

Trevor is doing so good. A few days ago he started eating so much food and hasnt stopped. He eats an average of about 4 ice cream cones a day (mint choclate chip is his favorite). After he is done eating one thing he is on to the next. He is bouncing off the walls (maybe a suger high). We love every minute of it. Well sort of, we still have to set some kind of boundries. But its great to see him feeling so good.

Trevor will be getting his next scan done sometime soon after we return. I hate scans. So please start praying for a clear scan now and i will let everyone know when i get the exact date. Also extra prays for a healthy, safe and fun vacation. And finally Trevors girlfriend Jillian is back at Chop with a fever so lets send some prayers her way to get her back home quick.

Well i guess i wont be updating while on vacation but as soon as we return i will let everyone know about all the fun we had.

Love The Greskos

Tuesday, January 3, 2006 7:17 PM CST

I hope everyone had a great new years! 2005 is a year we will be happy to put behind us. No resolutions for me this year, I think i just didnt have the energy to think something up.

Trevors birthday was great. We had a cake and ice cream cones at Trevors request. It was a small party but Trevor never fails to make out like a bandit in the present department. I cant tell you how happy we were to see our little man turn three. Also many thanks to all of the wonderful people from Robeson Lutheran Church for brightining Trevors day with so many beautiful cards. What amazing people you all are.

Trevor had a clinic appointment at king of prussia today. Everything went really good. His blood counts are all in the normal range. Kidney funtions are still bad as we expected they would be. The condition that Trevor has (i still cant even try to spell the name of it, way way to long ) Can take a long time to go away. So the Doctors are pleased with how he is doing. Trevor was due to start his 3rd round of accutane on Dec. 18th. This was pushed back so they could see how Trevor was doing on all of his new medications and to make sure his kidneys did not get worse. I believe the plan that is currently in place is to start round 3 soon after we return from disney. Oh and how did i forget We do not have to go to the doctors in disney! I am so glad it can just be a week of fun.
We also got to see our friend Catherine at clinic today. She is an amazing girl with an amazing family. So all in all a great day.

Trevor is really feeling great and looking amazing. He is full of energy. You never know what he will blurt out of his little mouth (always something that makes us laugh). Tabby is picking up on his wild habits. Shes always on the move.

Well i guess thats all for now. I will try to update again before we leave for disney.

Love Jackie,Chris,Trevor,&Tabby

Friday, December 30, 2005 7:02 AM CST

HAPPY BIRTHDAY TREVOR!!!!!!!!

My little man is 3 years old today. I cant even begin to descibe the joy i feel seeing my baby celebrating another birthday. He has been through so much this year and yet he still smiles. We have learned so much from Trevor. At just 3 years old he has achieved more than we ever could have dreamed. Tonight we are going to have a small cake and ice cream party, and of course presents!!!

We are also ready to say goodbye to 2005. Wow what a year its been. Although the year has been pretty rough, we made the best of it. Trevor and me were talking about what we did at the hospital, Dancing in the windows, Playing hide and seek in the cabinets, Tricking the nurses with some brown playdough (i am sure you can imagine what we did with that), and Trevor turned to me and said "That was a really fun time". Here we were trying not to mention the word hospital to Trevor with the fear that it would upset him. Who knew how many good memories i may also have forgotten.

God has blessed us so much this year. He has given us something we will never forget and that is all of you.
The Support, Prayers, and love you have all shown our family is breathtaking. Sometimes in life it is easier to see the bad than the good but if you stop and look around you will really see that there are so many angels amoung us. We thank you all from the bottom of our hearts!

Trevor is doing amazing. Last night he was pretending to be Dr. Gresko. Amazing how much he picks up. He was wrapping a band around my arm, I wasnt really paying attention and then i heard him say OK it looks good, just a little poke. Here he was pretending to draw my blood. He has every detail down to a T. Blood draws is one memory i hope he can leave behind in 2006. But anyway he took his finger nail and jabbed me as hard as he could in the arm. So i stole Trevors catch phrase "Be Gentle" He let out one of the biggest belly laughs ever. He is so silly.

Tabitha is doing great. She is in love with her new weebles toys. Its great she wont put them down so she has to scoot on her bum to get around the house. She is Trevors biggest cheerleader. She gives him a round of applause for just about everything he does.

I finally posted some NEW PICTURES so dont forget to take a peak.

P.S. Way to go Jillian on finishing another round of Chemo. We love you!!!

HAVE A SAFE AND HAPPY NEW YEAR!!!1

Love The Greskos

Tuesday, December 27, 2005 6:57 PM CST

Today Trevor had a clinic appointment to check his counts, blood pressure, and kidney functions. His kidney function is still far from normal but it has not gotten any worse. That is good news of course and the doctor was very pleased. His hemiglobin was 12.0 Which is great. He recieved his epogen shot today while we were at clinic so we did not have to be the bad guys. The epogen shot helps to produce his red blood cells while his kidneys are on vacation, we are very lucky he only needs one shot a week because it was supposed to be 3. Trevors blood pressure was very good also. He swallows one pill a night to keep that in check.

I hope everyone had a great Christmas. We sure did. Trevor got all the toys his little heart desired. Roboraptor is a definite favorite. We joke that Trevor is 13+ in the toy department. We bought him so many toys all year that he ran out of age apropriate toys long ago.

Friday is a very big day for us. Trevor will 3 years old!!! It is hard to forget back in febuary wondering if we would get to celebrate this birthday. We used to say at the end of the day how happy we were to have had one more good day. Although we still thank God for each day and even more every moment we are able to share with our children, we are now asking for decades instead of days.

Well thats about all for now. I have 2 wound up children that want to play.

keep the prayers coming for Trevor to remain healthy!

Thanks for checking in!

Love The Greskos

Tuesday, December 20, 2005 2:47 PM CST

Sorry for the delay in updating. We came home on saturday afternoon. Most of the day saturday was spent making mad dashes to pharmacies. We had some trouble getting one of Trevors new prescriptions filled. We also never recieved the shipment of Trevors new shots from Aetna. Fun Fun! Yet we are thrilled to be home.

I also want to thank mom mom and pop pop gresko for taking care of Tabby. Pop pop was babysitting her when we took Trevor for his blood transfusion. Who knew we would not come back for 4 days. I think Trevor likes to keep us on our toes.

Today Trevor had an appointment at Chop. It went really well. His blood pressure was great. His hemiglobin was 11.3 which is totally normal. I believe that he is acctually making some of his own red blood cells, because he had only had one shot and they take a week or so to kick in. He recieved a second shot today at clinic since aetna never sent ours. Since his hemiglobin looked so good he will only receive one shot a week instead of three. One of his kidney funtion tests showed an improvement the other was holding steady. And even more good news is that we do not have an appointment until next tuesday and we can go to king of prussia for that. We were told to expect at least 2 appointments this week. Go Trevor!!!!!

Last week wasnt all bad though. Trevor got to see his friend Jillian. He hasnt seen her for months so that was nice. She is doing very well and she looked as pretty as ever.

We are so excited for Christmas. Each holiday since Trevors diagnosis truly has new meaning to us. We are so thankful and greatful for each and everyday.

Thank you everyone for your prayers! We wish you all Happy Holidays!

Love The Greskos

Friday, December 16, 2005 3:08 PM CST

Whooo hooo!!

Finally a bit of good news. Trevors urine test to detect neuroblastoma was totally normal. The Doctors said that was what they expected. When Trevors hemiglobin was low there was some concern that it could have been cancer. Once his blood pressure went through the roof they were actually relieved. So although we still are not sure what the future holds this is something we can handle.

Today Trevors kidney functions were better. This is really good. We are anxious to see what they are tomarrow. It is hard to say if we are seeing them at there worst or not.

If all gos as planned we are hoping to bust out of here tomarrow with a few more meds than before. Plans are still on for Disney. We will probably just have to go to the doctors once during our trip. Oh well it could certainly be worse.

Thank you all for keeping Trevor in your prayers.

Love The Greskos

Thursday, December 15, 2005 7:20 PM CST

Trevor is doing well. Well he has felt great all week infact. Who knew all this was going on in his little body.
Trevors oncologists are fairly certain Trevors kidneys were damaged from the radiation. There is a name for this syndrome but i dont have it in front of me and i certainly dont even want to try to right it. (its a really big name).
An ultrasound showed his kidneys were enlarged as they thought they would be. He is on blood pressure medicine and will remain on it for some time. We are hoping maybe a few months but it is possible for it to be years. He will also start getting shots to help him produce red blood cells. We know very little about what is going on with Trevor because Dr. Grupp says it is very rare. He sees about 1 case every 2 years. We are praying this is as bad as it gets but we have been warned it could get alot worse. Only time will tell. He will be monitered very close. Well i guess thats about all for now or all that i can understand atleast.
Please send lots of prayers to heal Trevors kidneys. And as always that he remain cancer free.

Please pray for the Worth family. They lost their beautiful baby boy early this morning. Anthony was an amazingly strong boy. He had the best little smile and wow what a little flirt. Anthony we love and miss you!

Love The Greskos

Wednesday, December 14, 2005 8:42 PM CST

More bad news!

Today we went to the kop clinic for a transfusion. Trevors blood presure was way up. He Also had a reaction to the transfusion. After the transfusion his blood pressure was dangerously high. The doctor at king of prussia called 911 and we were sent to bryn mar hospital. Trevor was given meds to stabilize him and then we took another ambulance to chop. The doctors are speculating that Trevor could have kidney damage from the radiation. This would also explain the low hemiglobin. So hopefully we know more tomarrow.

Please send lots of prayers Trevors way!
I will update when i know more.

Love Jackie

Tuesday, December 13, 2005 6:14 PM CST

Ok so today was a bad day. Trevor had a clinic appointment which was supposed to be in king of prussia but we changed it to philadelphia because we needed an accutane prescription. Trevors bloodwork was funky. Well actually just his hemiglobin. The first test came back at 7 and the second at 6.9 . This is very very low. Normal is 11.5 to 13.5 . Dr. Grupp said that it is probably something viral. Certain virises attack red blood cells. So we are hoping and praying that is all it is. Trevor did a urine test that detects neuroblastoma to rule out relapse. We should have the results of that test on friday. So please pray for the test to come back normal. We also temporarily took him off bactrum (an antibiotic Trevor takes to protect him from phemonia) Bactrum can also do this to your blood counts. The other possibility is that accutane could be the cause. We did notice a slight drop in his counts since he started accutane. Dr grupp has never seen this happen with accutane but he has read about it happening. So everyone aggreed that this is probably something that will go away on its own and we will never know the exact reason. So after a very long upseting day we are home. We head to the king of prussia clinic in the morning for a blood transfusion.

Thank you everyone for checking in on Trevor.
We are asking everyone to pray that Trevor remains cancer free.

Love The Greskos

Thursday, December 8, 2005 6:50 PM CST

I just wanted to give a quick update before the weekend.
Trevor is doing great. He is getting excited to go to Disney. We are planning on visiting gator land where Trevor can hold small gators and even feed them. We think this will be his favorite part of the trip. He also wants to go sledding tomarrow, I am not sure if that will work out since he screams about how cold he is just walking to the car.

Our little Tabitha is now walking across the whole living room without holding on to anything. Fun! Her and Trevor get along so great. Tabitha will baby talk and Trevor gos over to her and says "what did you say bunny" "Is something wronge" Its really cute.

We were told that if we could get an appointment for pictures at a time when it was not crowded then we could take Trevor. With so many of our little friends having such a hard time this month we got a little scared. We also have such a big couple of weeks ahead of us Christmas, Trevors 3rd birthday, and Disney that we just didnt want to take any chances. And well how could i forget Trevor hates having his pictures taken. So tonight we tried amature photography. I am pretty sure you are all wondering how that worked out for us. Well after alot of arguing (me and Chris of course), a game of catch the baby, Trevor screaming "i tired of getting my picture taken, and a few wrestling matches between the 2 little ones. We have a pretty cute picture to put in our christmas cards. If anyone is in the mood for a good fight then i think home photography just might be for you.

Well i guess thats about it. Hopefully everyone who likes the snow gets a chance to enjoy it and anybody who doesnt hopefully will not need to go out in it. Have a great weekend!!

Love Jackie, Chris, Trevor, and Tabby

Monday, December 5, 2005 2:10 PM CST

I would like to start out with a big Thank you to Santa Clause for making a long journey from the north pole to visit Trevor. Last night Trevor and Tabby got had a big suprise when santa stopped in. Trevor was a little shy at first but warmed up in no time at all. I have some really cute pictures and i will try to post them this week.

Trevor is done with his 2nd round of accutane. Whooo Hoooo! He gets a nice 2 week break that he more than deserves. We havent had a doctors appointment since Nov. 1st. He gos to the king of prussia clinic on the 13th. It has been great.

Yesterday we took Trevor over to mom mom and pop pops to celebrate his cousins Tyler and Alexias birthdays. Trevor had a great time. It is so wonderful to get to see him playing with kids.

We thought Trevor was completely off precautions on Dec 8th but that was wronge. He is allowed to go to places like the post office, or the store when it is not to crowded, but cannot do things like go to the movies where there are lots of people. The nurse said we can still take him to church when we get Tabitha baptised because that is an important event and he should be there.

Trevor is also allowed to take his make a wish vacation. We are off to disney on jan 8th. We are staying at animal kingdom. Mom mom and pop pop Gresko are also coming. We cant wait!!!!!!

Now that i have filled everyone in on Trevor i would like to ask everyone to say some prayes for the Deford family. Anthony was an adorable 2 year old. He was diagnosed with neuroblastoma and was in the same study as Trevor. During Anthonys 2nd transplant he devoloped a condition called VOD. VOD is when your liver is damaged from the chemo and or radiation and is very serious. Anthony passed away on Friday evening. This is really difficult to even write about. Anthony reminded me of Trevor in so many ways. They both walked the halls, picked up ladies, played on the window sills. The last time Trevor had a scan we stopped by to see Anthony, He was sitting on the window waving for me to come in his room. He was in transplant and i couldnt. Me and Anthonys father were saying how much they looked and acted alike. I cant even remember how many times i would be out in the hall and see Anthony and hurry to catch up with him thinking it was Trevor. Anthony will be greatly missed by us.

Also please pray for
Jillian to have an easy round of chemo
Ruby to get home from her second Transplant fast
Shellie to get rid of pnemonia
Anthony W to have an easy time through transplant and beat cancers butt
Tyler and Michael To just stay home and love every minute of it.
Trevor to continue to thrive and do wonderful

And all of the sweethearts who are fighting so hard to beat this disease.

Love The Greskos

Monday, November 28, 2005 1:33 PM CST

I will try and keep my cool. I just typed what was probably the longest entry i have ever typed on Trevors page and when i cliked to submit it poof. I was kicked off the internet. Oh well i will try again.

I hope everyone had a wonderful Thanksgiving. We had a great one and we had so much to be thankful for this year.
Trevor did not like the turkey but ate some mased potatoes. We sometimes wonder if he is a vegetarian. I certainly hope not because that would break his daddys heart.

Trevor is doing great besides the big fat bloody lip he got on saturday. He was trying to pull one of his baskets of toys off his book shelf and boom! I know that this is a perfectly normal boo boo for a 2 year old but i cant help but wonder why the kid cant catch a break.

Today is day +110 past his stem cells. Yep i am still counting. Although we still have moments of panic and fear we are trying to keep neuroblastoma a thing of our past. We are hoping that sometime in the begining of december Trevor will be allowed to return to normal life. I think the first public place we will take him will be toys r us. I am sure anyone who has been to our house or even visited Trevor during transplant is wondering what in the world Trevor would do with more toys but it seems like a good place to go.

Trevor is on his 8th day of his 2nd cycle of accutane. He has 6 more days during this cycle and 4 more cycles to go. He is still doing an amazing job swallowing his pills. He acts like we are annoying him when we bring him his medicine but he just takes it and moves on with his day.

Well i guess thats about all thats going on with Trevor. Our very good friend Jillian is turning 2 on tuesday if anyone would like wish her a happy birthday You can visit her page at pa jillian.

Thank you to everyone for your continued prayers!!!!

Love Jackie, Chris, Trevor, and Tabitha

Tuesday, November 22, 2005 12:19 AM CST

I wanted to give a quick update even though thankfully there is really not to much to report. Trevor is doing great. He is wild, full of energy, eating well, and always talking back. So he is right where he should be for an almost 3 year old.

Trevor started his 2nd round of accutane on monday. He will take it for 14 days just like last time. He is swallowing his pills like a big guy. We did however have a little scare last night. Trevor had a headache and we were told that if he ever had a bad headache it could mean the accutane was causing his brain to swell. This is extremly rare but so is childhood cancer right? So i called the oncologist on call and she said he would be vomiting and seeing double as well. She also told us he can just get a regular headache from the accutane. So everything seems fine, I think Trevor just likes to keep me on my toes.

Tabitha has started dancing, its really cute. She is also letting go and standing by herself so i am sure it wont be long before shes off and running.

Oh yeah about the potty. In Trevors very own words "Im tired of doing that" . So i am back to being a full time diaper changer. Oh well!

Hope everyone has a great Thanksgiving!!!!!

Love The Greskos

Monday, November 14, 2005 5:00 PM CST

NEW PICTURES!!!! Be sure to check them out, there not the best but its all ive got.

Something very exciting just happened at our house. I thought i would stick to tradition and talk about poop. But this time its a little different. Trevor pooped on the potty for the very first time, not once but twice. He has been peeing on the potty on and off since he was about 18 months but has always been scared to poop. Today he ran over to me and said mommy im scared. I said of what and he said to poop in his diaper. I said you want to try it on the potty, he said yep. About thirty seconds later the deed was done and we were hooting like we had just won the powerball.

So since we are already on the poop subject this is probably a good time to talk about C-DIFF this is the bacterial infection that Trevor has had for months. The latest test shows he still has it. He started taking Vancomyicn on tuesday. The only place we could get the precription was at Chop in philadelphia. So we went for a lovely ride on tuesday and Trevor got car sick the whole way there. What a fool i was to not get leather seats in my car.

On saturday our church held a talent show that they dedicated to Trevor. He was not able to attend because of his precautions so Chris video taped it. It was so nice. It started out with spiderman talking to Trevor which just about knocked him out of his socks. He said "Is he talking to me". They sang some of his favorite songs like On top of speghetti and Youve got a friend in me. He really enjoyed watching it. Robeson Lutheran Church has been so wonderful to our family. We are so greatful to have such amazing people in our lives.

We tried to spend as much time as possible outdoors enjoying the nice weather this weekend. I took the kids for a long walk while Chris stayed at home taking care of leaves. Chris does not like leaves so i thought it was best to stay away as long as possible. We went over to mom mom and pop pop Greskos to play on sunday. Trevor was driving his john deere gator like a maniac. He was standing up and still not steering. He had a great time and im sure pop pop slept well that night.

Well thats all for now.

Love Jackie, Chris, Trevor, and Tabby

Monday, November 7, 2005 12:26 AM CST

Trevor has broken free. Whoo hooo!!! He spent sunday playing with his cousins Tyler and Alexia. Although its not exactly what the doctor ordered we felt letting him play with kids 2 days early was well worth the risk. He has been talking about it all day. He is eating everything in sight because he says he wants to grow big like Tyler. And after a really big hug from Alexia i have been officialy taken off of his girlfriend list. Oh well it was bound to happen sooner or later.

Trevor will get his last pill of accutane tonight, then he will get 14 days off before we start round 2. His poor lips and skin is really taking a beating from it. He is still doing an amazing job swallowing his pills. We are sooooo proud of him.

On another note it seems Trevors eyelashes are falling out again. I dont know why because it has been 89 days since he finished treatment. Dr. Grupp did say his hair was growing in slower than they would like it to. Oh well what are you gonna do. The hair on his head is coming in nice. He still looks completly bald until you get close to him. I think its growing in brown.

Trevor and Tabitha are so cute together. She chases him through the whole house. She always grabs his pant legs and pulls them down. Trevor loves being naked so he has no problems with it.

Sorry i never get through an entire entry without talking about somebody being naked or poop.


Well thats about it for know.

We thank everyone for keeping Trevor in their prayers.

Love The Greskos

Tuesday, November 1, 2005 6:59 PM CST

Wow, I am a slacker. The fact that there have been no updates can only mean one thing. No news is good news.

Hope everyone had a nice Holloween!!! I know Trevor and Tabby did. They dressed up as dinosaurs. I know what your thinking (poor Tabby should have been a princess) but they looked adorable. I will post some pictures as soon as i get a chance.

Trevor is doing great. His eating has really picked up. He is wild and crazy from morning till night. He has been having his fair share of temper tantrums. We have started giving him time outs. But he says stop hurting my feelings so like a truly unfit parent i just say sorry and end his time out before it even starts. Oh well what are you going to do. Its been a bad year and disipline has been the farthest thing from our minds.

So here is a little riddle Whats 2 years old, Wears diapers, Drinks out of a bottle, And swallows pills?????
Come on any guesses. Thats right our big boy Trevor is on his 8th day of accutane and has swallowed every pill like a champ. Whoo hooo!!! He takes the pills for 14 days 2 times a day every 2 weeks for 6 months. This is the acne medicine that helps kill remaining tumor cells. It makes his skin so dry and lips crack badly, but has minimal toxic side effects.

Trevor had an appointment at Chop today. Dont ask me what his blood count are, I totally forgot to ask. He was so brave. He got lots of blood drawn and a vacine for ear infections. We think he still has C-Diff (The bacteria causing mucous in his poop). We wont know the results for a few days but he will likely be started on another antibiotic soon.

Some of Trevors precautions will be lifted soon. We were told after Nov. 8th he can have 1 to 2 friends his age over to play providing no body is sick. He still can not go to public places but that will be soon to.

Well i guess thats it for now Trevor wants to play.


m ,mjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjmk,kkkkkkkoooooolmloktttttttttttttttttttttttttttttttttttttttttttttttttttttttttttddttttttttttttttttttttttttttttttttttttttttttttttttttttttttttdddddddddddddd

That was Trevor saying Hi!!!!


Love Jackie, Chris, Trevor, and Tabby (or bunny the new nick name Trevor gave his babby sis.)

Monday, October 24, 2005 1:19 PM CDT

Trevor is doing great. He is trilled to have his baby sister home. Tabby is crawling everywhere, pulling her self up and trying to get up to walk. Yes i should be thrilled but the girl is only 7 months old. I guess its how the old saying goes, No rest for the weary.

(Mike i hope your not eating)
I had not mentioned that the buggers Trevor has had in his poop turned out to be c-diff. We found this out the day i got the call about the bad scan, so it seemed insignifacant. He has been on medicine for about nine days and will be done tomarrow. He hates the medicine and he gets it every 6 hours so that means even in the middle of the night. So we will be very happy to get rid of that medicine.

Last weekend we wanted to do something special with Trevor so we found an empty playground and had a blast. We almost had a picnic but the wind spoiled that so we ate in the car. But i think what Trevor enjoyed most was shopping. No we of course can not take him to the store. But we didnt see any reason we couldnt bring a store to him. So we set up a store in his room, Chris went out and bought all kinds of things. Trevor grabbed his secret money hat and his little shopping cart and he bought everything.

Trevor also has a fuzzy little head. I cant even remember what he looks like with hair. Right now he is sporting a big fake tatoo of a bat on the back of his head. It makes him a little mad that he cant see it though. He also has beautiful eyelashes again.

We are supposed to meet with make a wish next weekend. Trevor can not get in the water with dolphins in florida so the new plan is the bahamas. Dr. Grupp said the begining of January would be fine, so unless something changes we should be making waves with flipper pretty soon.

Well i guess thats it for now. I cant wait for holloween. I will make sure to post a picture of them in there costumes.

Love The Greskos

Thursday, October 20, 2005 5:36 PM CDT

THANK GOD! THANK GOD! THANK GOD!

Trevors scan was all clear!!!!!!!!!!!!!!!!!!!!!!!!!!!

I can hardly describe how thrilled we are. When i got the news I screamed yes there is nothing there. Trevor started clapping and said "Yeah , I did it", I did it "!!!!!

We want to thank everyone who has been praying for Trevor. Please continue to pray for Trevor to remain cancer free forever.

I will make sure to update again this weekend, We have had a really fun week despite everything. Well it is off to bed early tonight for us. We have a lot of sleep to catch up on.

Thank you all again!!!!

Love Jackie, Chris, Trevor, and Tabitha

Saturday, October 15, 2005 12:50 AM CDT

I wanted to give an update on what is going on. First of all i would like to thank Jen for updating my page. Jillian (Jens daughter) and Trevor were both diagnosed with cancer within days of eachother, We have been through so much together and we are so blessed to have them as friends).

I spook with Doctor Grupp again yesterday and it seems things are looking better than we first thought. I will first try and explain what an mibg scan is. Trevor was injected with radioactive iodine on wed. The scan which was the next day picks up hot spots or uptake (so it lights up on certain spots) It should light up on your bladder, liver, heart, sometimes your thyroid, and two other glands in your face.

When Dr. Grupp first called me all i could hear him say was that Trevor had an abnormal spot on his face, something about his head might have been crooked, and that he thought it seemed odd. I know he keep talking but all i could hear was noise, I was in shock.

I called him yesterday and he told me that he is certain Trevors head was turned. There is much more uptake on one gland than the other. He told me that he still cannot promise that the spot on Trevors face is not cancer but he feels there is an excellent chance that it is not. I loved the fact that he used the word excellent. I asked him if there is reason to be hopeful and he said there most certainly was and it is also very realistic to be hopeful. I also asked him if he has seen this happen before in the same spot (i got the feeling i was over stepping my boundries) but he gave me the answere and it was yes he had. Another thing he told me would be very rare was the fact that the spot in question is a spot that Trevor never had disease to begin with. Neuroblastoma almost always would relapse in a spot it already was. And finally the fact that just about 40 days earlier he had a completly clear ct scan of his head.

So although we feel a little better than we did at first we are still very upset and concerned. Dr. Grupp wants Trevor to have another ct scan of his head, This scan will confirm whether this spot was cancer or just a bad scan.
The CT scan has been schedualed for Thursday at 12:00. We are storming heaven with prayers and we are asking all of you to do the same. Please, take a little extra time to ask God to watch over Trevor and let him have had a complete cure of neuroblastoma.

I also wanted to let everyone know that Trevor is feeling amazing. As i type he is growling at his pop pop pretending to be a big dinosaur. Tabby will be going home with nanny and pop pop for the week, It will give me and Chris a chance to take Trevor out to play more and just get a little rest.

Thank you in advance for all of your prayers, we will hopefully get some great news on thursday evening and will update then.

Love The Greskos

Thursday, October 13, 2005 6:35 PM CDT

Hi everyone. This is Jen (Jillian's mom). I am writing on behalf of Jackie this evening. Jackie called me to give me the word on Trevor's scan he had today at CHOP. Dr. Grupp called Jackie this evening to let her know that Trevor's scan can back "abnormal". They saw a spot (shadow) on the scan. Although, nothing showed up on his CT scan he recently had, this is now a concern. I put the word "shadow" in because Dr. Grupp told Jackie that the location of the spot (shadow) would be an odd location for Trevor to have a mass. He is hoping that Trevor just had his head tilted a little, which would give off a shadow on the scan. The next step for Trevor is to have another CT scan done. They want to hold off doing this one for a few weeks and jump back to doing another CT scan (which remember came back clean). Jackie will write ASAP when she finds out the date of the next scan.

Although I do not have any doubts that Trevor is still good, he really needs our prayers more than ever. Should his disease return, there is a good chance that they would not be able to help him. So, until we get a 100% definite answer, I think we should all believe that Trevor is just a stinker and tilted his head (he was just trying to throw them for a loop). Being Jillian's mom I have faith in the power of prayer. Please, please, please pray that Trevor is stronger than his disease. We should also pray that Jackie and Chris can be strong for Trevor and Tabby during this painful waiting period.

On behalf of the Gresko family, I thank you for your continued support and prayers.

Love you!

Sunday, October 9, 2005 3:37 PM CDT

Sorry for slacking on updates, but no news is good news and Trevor is really doing amazing. He has been running through the house like a mad man. His spirts are great, he is always giggeling his little butt off, singing songs, playing with Tabby (whom he is absolutly in love with), or just getting into trouble. His eating is still so so, but he was never a huge eater. He had a fun sleepover with pop pop and nanny McFeeley while me and Chris hit the town.

Trevor has not complained of any aches or pains for at least 5 days now. Although Dr. Grupp told us he did not think they were anything to worry about it was starting to make me crazy. I guess with the somnolence syndrome he just felt lousey and i also think he enjoyed all the attention he got each time he said something was hurting.

So i cant believe i forgot to mention some great news in the last update. Dr Grupp told us that he is certain Trevor does not need more radiation. Whoooo Hooooo!!!!! He told us that Trevor falls in the less than 5% of neuroblastomas that have no residual tumor left in his body. So in lamest terms Trevors response was terrific. And since there is no residual tumar left behind Trevor will not need a ct scan every 3 months(he will have at least one ct scan in the next year, but thats better than four), he will only recieve an mibg scan Which is a nuclear medicine scan. This wendsday i am taking Trevor to the king of prussia clinic. They will give him an iv and inject radioactive iodine into him. Then on thursday we go downtown and Trevor will get put under general anestia (remember they will no longer see him with standard sedation, Dont get me started) And he will get his mibg scan.

WE ARE ASKING EVERYONE TO PRAY FOR TREVORS SCANS TO BE CLEAR! I am not sure when we will get the results it should either be Thurs. evening or early Fri. I will update as soon as we get the good news!!!

Thank you everyone who has kept Trevor in their prays. It truely means the world to us.

Love Jackie, Chris, Trevor, and Tabitha

Tuesday, October 4, 2005 8:02 PM CDT

Trevor is awake. Whoo hooo! It seems the somnolence syndrome is gone. He is still a little weak from not eating much the past week.
So as for Trevors appointment it went very good. His counts were great. White blood count 8.6 (normal) Hemiglobin 12.1 (normal) platlettes 177 (normal) and ANC 2597 (great). We really had a nice sit down with Dr. Grupp (he is so wonderful) He spent over an hour just listening to our concerns. When we were admitted last week some of the Doctors thought Trevor may have thrush and some of the doctors didnt. Dr. Grupp thinks he does so he is now taking some antibiotics for that. We also have been concerned about his poop. Yep thats right his poop. Since the second transplant it sometimes looks like buggers. So they took a sample and will test it for everything, even though Dr. Grupp thinks it is fine. We have also been worried about Trevor always saying everything hurts, sometimes his finger, then his foot, next his bum, and mostly his weiner. He has been complaining about his weiner since about the middle of the last transplant. They tested for bladder and kidney infections and all tests were fine. Dr. Grupp feels it is probably sensitive skin from the TBI. He also assures us that if we were worried about it being the cancer he has certainly never seen neuroblastoma in the weiner. He also told us that if it were the cancer the pain would not jump around all over his body, it would be confined to the same area and hurt all the time. So the Doctor wasnt worried in the least but i am his mother so it is my job to worry. Dr. Grupp decided that since i am losing sleep over this the best thing to do is to get the scans over with. This way as he put it i can get the scan done, go home and puke, Get the good news of a clear scan and move on. So i should find out tommarow what day Trevor will have his scan. I think it will be the end of next week. Dr. Grupp said they have no rhyme or reason for doing the scans every 90 days, so 3 weeks earlier makes no difference. Trevor also can start taking his accutane as soon as we know for sure the somnolence syndrome is gone. This we thought would not happen until november but Dr. Grupp said that the 90 days is just a rough time line and that often when the children are learning to swallow pills the dont get much of the first dose anyhow.
So Trevor is doing really great according to the Doctors.

So now i am going to ask everyone to please say special prayers for Trevors scans to be clear. I will update when i have the day for the scans.

Love Jackie, Chris, Trevor, and Tabitha

Sunday, October 2, 2005 11:04 AM CDT

Well our little Trevor has been having a pretty rough week. It seems the little fever he had on monday was probably the start of something known as somnolence syndrome. It is a result of the total body irradiation. It is basically because along with the rest of his body his brain also recieved radiation. He is sleeping alot, about 13 hours at night then during the day he wakes up for about an hour and gos back to sleep for about an hour. When he is awake he is drowsy, irritable, he has no desire to eat, but he is still drinking plenty of milk. It has been about 7 weeks since Trevor had the radiation but the Doctors assured me between 6 and 8 weeks after is the most common time for this to occour. It usally lasts about a week or 2, sometimes though it can last up to 4 weeks. We are just praying this goes away soon. It is actually fairly common more than half of the children who get the TBI get somnolence.

So on a better note me and Chris went out for dinner and drinks last night. I really needed that! (the drinks of course) Mom mom and Pop pop Gresko stayed with the kids. It was really good for Trevor because it made him want to get off the couch and be active.

Trevor has an appointment on tuesday in Philadelphia with Dr. Grupp. He will decide if Trevor should be put on a stimulant to get him through these next few days or weeks.
Well i guess thats about it for now.

We want to also thank everyone for continuing to pray for Trevor. It really does mean so much to us.

Love The Greskos

Wednesday, September 28, 2005 11:08 AM CDT

Well we are home after a short stay at the lovely Childrens Hospital Of Philadelphia. Trevors fever finally reached 101.9 the onco nurse said she wanted us there in one hour or we should take him to a local ER. Kind of hard to be there in an hour scince we live further than that. I really didnt want to take him to the local hospital, so chris made the mad dash home from work and my mom made the mad dash here for Tabby. Trevor puked the whole way there which had nothing to do with the fever. As most of you know Trevors car sickness is a whole nother issue at hand. The poor kid cant catch a break.
We arrived at the Chop Er at 4:30 where Trevor got an IV and Blood counts and cultures drawn. His counts were great His Anc Was 3693 (very good) White count 12 (normal) Hemiglobin 11.1 (normal and the highest we have ever seen it) Platlettes 139 (still low, but great for being post transplant) After about 5 hours in the ER we were finally admitted. The oncology floor was packed so we went to floor 5. Trevor continued to run a very low grade fever and his heart rate was high. His 24 hour blood culture to rule out infection came back fine and we were discharged at about 6:30pm last night.
He Is doing very well and is happy to have his baby sister back. Well that is all i can write now because someone is pulling on my leg.

Love The Greskos

Monday, September 26, 2005 12:07 AM CDT

Just wanted to give a quick update. This morning came with a bit of a suprise. Trevor temperature is 100.3. I called the transplant nurse and she said they dont really consider it a low grade temperture until it reaches 100.5 so i was told to put my thermomiter down and then recheck it every 2 hours. So far it is holding steady at 100.3. Lets pray for it to return to normal so Trevor can avoid another stay at Chop.
Other than that Trevor continues to do great. He had a fun weekend just playing outside and shooting silly string at anything that moves. Yesterday he spent the day at mom mom and pop pop Greskos riding on his john Deere Gator and just having fun.

Well i will make this one short but will update again as soon as we know what is going on with his temperture.

Love Jackie, Chris, Trevor, and Tabby

Wednesday, September 21, 2005 12:19 AM CDT

Trevors appointment went great. His Anc was 2640 White blood count 11.1 Hemiglobin 10.7 and platlettes 129. So everything looks good. His energy is back to normal. He is bouncing off the walls and doing his best to drive me crazy. His attitude is right where it should be for a 2 and a half year old. I guess it is time to start to disipline him again. When we tell him he needs a time out he just laughs and yells no!!! Well these are the kind of problems that we want. We will take a bratty child over cancer any day.
Trevor also learned to swallow his mini m&ms. He is doing a really great job. Soon we will switch to regular m&ms because accutane is evan larger than that.
I finally have some new pictures i am going to put on his page. I will try to have them up in the next day or two.

Well i guess thats about all for now. His next appointment will be in two weeks. About a month after that Trevor will have his first set of scans done. Please continue to pray that Trevor remains cancer free forever.

Love The Greskos

Sunday, September 18, 2005 10:57 AM CDT

Trevor is having a great weekend. He went to a yard sale at our neighbors yesterday. It was the first time he has ever bought anything with his own money. He made sure we brought his secret money hat. I am sure most of you know which hat i am talking about because he isnt very good about keeping it a secret.
Trevor then discovered the joy of playing with silly string. Wow it is pretty amazing just how much of your house one little can of silly string can cover.
We also bought Trevor some big boy underware. He does very well with going on the potty. But we are not putting him under any pressure. He will be out of diapers when he is ready to be. He really liked the way the underware felt but even better than that he liked being naked and i mean he really liked being naked.
Today has started out pretty exciting as well. To all of the men out there, this is just a little advice as to what to do if you step on a yellow jacket nest. DO NOT RUN TOWARDS YOUR WIFE AND CHILDREN!!! Dont worry Trevor and Tabitha are just fine. I threw Trevor in the front door and went to grab Tabby. She had a bee on her, but that one stung me. Chris got it pretty good. He was stung on his nose and just about everywhere else.
Well i guess the only other thing going on around here are all of Trevors questions. What do apples eat? What do crickets eat? What kind of fruit grows on trees? Yes he is keeping us on our toes and we wouldnt have it any other way.

Trevor has an appointment on tuesday at the king of prussia clinic to get his blood counts done. Then he should get another 2 week break.
Hope everyone is enjoying the weekend.

Love Jackie, Chris, Trevor, and Tabitha

Wednesday, September 14, 2005 2:31 PM CDT

Trevor is armed and dangerous. Sort of. Trevor has discoved the garden hose and even better spraying his daddy with it. He had a blast spraying Chris from head to toe (in his work clothes) Dont worry we were smart enough to ask him to take his wallet out first. He didnt even want to spray me, boy have i raised him right.

Tabitha had her 6 month well visit today. She did just fine. They said she weighed 16 pounds 6 ounces but when we weighed her at chop last month she weighed 17 pounds 4 ounces. Who knows which scale was lying.

Trevor is doing very well. He is still trying to learn how to swallow a pill. We are using mini m&m's. He is getting a little better. He used to just chew it right away now he is keeping it in his mouth longer but still cant resist chewing it. He will be starting to take accutane in about a month and a half. It is really best if he can learn to swallow. Accutane is acne med taken to find hidden tumor cells. It is not approved by the FDA for children and that is probably why there is not a better way to give the medicine.

Well i guess that is it for now. I have 2 napping babies and need to try to take advantage of it.

Love Jackie

Saturday, September 10, 2005 7:47 PM CDT

There is really not to much going on around here. This is of course good news. Trevor is still less energetic than before. He is eating pretting good now. It definitly would not hurt him to put a little meat on his bones.
Trevor spent the day playing with his nanny and pop pop. Can you belive me and Chris actually left the house TOGETHER, Yep just to pick up lunch and swing by walmart but it is a start. Trevor also had fun painting a pumpkin. I am hoping to take him across the street to the orchard to pick pumpkins, it is an outdoor activity so i think he is aloud.
Since Trevor has been more tired we have been watching lots of movies and playing games that require little physical activity and just trying to enjoy each day to the fullest.
Ending treatment is alot harder than i thought it would be. I guess when you are on treatment you become so secure with the fact you are activly fighting. You become close to so many wonderful parents that are also in the same situation as you. There is always someone around who really knows what you are going through. And they always seem to know just what to say to get you out of your rut. So Jen if you are reading this i need that kick in the butt you always give me when i freak out.

Well i guess thats it for know.
Please keep Trevor in your prayers

Love Jackie

Wednesday, September 7, 2005 12:34 AM CDT

Sorry i know i've been a little lazy on the updates but everything is going just fine. Trevor had a nice weekend. He drove around the yard in his hummer, its really cute he doesnt steer it at all he just steps on the gas and makes everyone chase him. We took him for a ride to look for animals. He ended up getting car sick like always go figure he pukes more from being in cars than he does from chemo. And we stopped by an empty play ground so he could take a few trips down the sliding board.
His eating is picking up more and more each day. Trevor had an appointment at chop yesterday. He needed to have 6 tubes of blood drawn. I am sure i dont need to tell you how much he enjoyed that. All of his counts were great although his platletes had fallen some since last thursday. We were not supposed to go back for a month but now they want him to have another blood count done in 2 weeks. We can go to the King of prussia clinic for that.
As far as we know he will not get more radiation but that is not written in stone so we will just wait and see.
Starting in november Trevor will start taking accutane it is acne medicine but also helps find hidden tumor cells. So this means Trevor needs to swallow pills. We are trying to give him a few weeks off and then start teaching him.
Well i guess that is really it for know.

Love Jackie, Chris, Trevor, and Tabby

Friday, September 2, 2005 1:09 PM CDT

We were disharged monday. Trevor is doing really good. He is a little bit tired. He is drinking good. He was having trouble eating. He could only stomach yougart, jello, pudding, and applesauce. Last night he ate an entire banana and today he had french toast, pudding, and some cheese. The cheese unfortunatly came right back up but at least its a step in the right direction.

Trevor had an appointment at chop yesterday and his blood counts were great. ANC 4198 White Blood Count 12.3 Hemiglobin 10.8 and Platletes 93. Although he did not enjoy getting stuck for labs he was a real trooper about it. Last night i found out we will need to be back at chop next Tuesday for some more blood work. Dr. Grupp will be doing some immune system testing to make sure the T cells Trevor got back are doing there job.
After that we are supposed to get a full 30 days off with no appointments (as long as he doesnt need radiation).
Dr Grupp also had the nurse call last night about local radiation. They are not certain yet but after having many Doctors look at Trevors scans they are leaning towards no more radiation.


Tabitha and Trevor are really enjoying each other. She just lights up when he plays with her. When Trevor makes his mean face at her she just laughs. Finally somebody putting the little stinker in his place.


Well i am sure i am forgetting a million things i wanted to write. Trevor is nagging me to play little people. Hope everyone has a nice holiday weekend. Oh yeah Trevor has the clear to take a full head to toe water bath. We cant wait to see him splashing around. We have been waiting for this moment for so long. I am sure we will be getting a little teary eyed. I will take some new pics of Trevor and Tabby and post them soon.

Love Jackie, Chris, Trevor, Tabitha

Sunday, August 28, 2005 6:11 PM CDT

Day +18

Yesterdays anc was 5056 and todays was 7650 Trevor is done getting his nightly shot which i am sure makes him very happy. He really pulled through with flying colors. Trevor only recieved 2 blood and 3 platlete transfusions (Thank you to all who donate blood products)and it seems he is producing all of his own blood products now.

Oh yeah Trevor also survived a mishap with dilaudid (pain med) he was mistakenly given 2 1/2 days worth in one dose on friday night. He seemed very unaffected. The nurse was so upset and it also made me see how i could never have a job like they do. They work 12 hour shifts and they cant make mistakes.

Well as long as our little stinker keeps drinking we will be out of here tomarrow. I feel very nervous about being done treatment. It feels very much like starting treatment did, kind of like walking into a dark room and having trouble catching your breath. I am sure as each day passes we will get more and more comfortable with our new "normal".

I want to thank every one for all of the E Cards and Cards (especially all of the cards from robeson luthern church) Everyday Trevor looked foward to all of the cards. It really did brighten his day. I know we owe about a million thank you cards and being that my schedual will be much less chaotic i will definetly be working on those.

Trevor is supposed to have his picc line removed before we leave tomarrow. We are so happy to be able to take him home with no tubies. That was something that i never really got used to. Tubes in my childs chest just never felt right to me. Trevor will be on very strict precautions still. As time goes on more and more of the precautions will be lifted.

Well we are packing up the room so i better go. I may not update for a few days. I will have alot of unpacking and catching up with Tabitha to do.

Thank you all for all of the love and support you have all shown to our family.
Please countinue to keep Trevor in your prayers.

Love The Greskos

Friday, August 26, 2005 8:51 PM CDT

DAY +16

Trevor is doing great. He spent a good part of the day running through the hall. He also spent some time in the play room. He really had fun and seems to have as much energy as always. He Still has the occasional nasuea from mucos in his belly. The Doctors are saying we should be home monday or tuesday as long as things keep progressing in a positive manner.

Now for the kind of confusing but really great news. Dr. Grupp sat down with me tonight and went over Trevors head scan. He says that the scan is totally normal and there isnt even scar tissue left from the tumor. The Doctor from penn disagreed slightly saying his bones are a little larger than normal (this is not a bad thing they are just saying they can tell there was a tumor there at one time) Dr Grupp does not agree that the bones appear larger. Although all of this is confusing we had been told it would kind of be a miracle to find no remaining dead tissue. Dr. Grupp said then yep i guess we can call it kind of a miracle. So as for radiation this to is confusing since the scan showed nothing, there is no clear place local radiation would be given. Radiation in the area behind the eyes could cause more harm than good. Trevor has already recieved radiation to his entire body including that area so now the desision needs to be made if more would benifit him. Dr Grupp is having some Doctors in California looking at all of Trevors scans to help make the desision. He may also be eligible to go to one of the proton therapy centers (i think there are only 4 in the country but only 2 or 3 in operation) This is the newest type of radiation that targets only the tumor and spares healthy tissue. The problem being once again where would they radiate there is nothing visible there. Dr. Grupp said that although this will all take some time to figure out, it is a really great position to be in. It is so much better to find nothing than it would have been to find something.

Well hope everyone has a good weekend!
Love Jackie

Thursday, August 25, 2005 6:19 PM CDT

DAY +15

Trevors anc was 3605!!!! We are really getting close to going home. Trevor had to have an iv placed for his CT scan. The picc line is not thick enough for the contrast he needed for the scan. He did really well with it but after the women left the room Trevor said "mommy were they allowed to do that" I thought it was so cute. He is telling us his pee pee hurts but all tests indicate there are no infections. He was taken off the pca and put on oral meds but he seemed to be having some withdrawl symptoms so he is now getting iv pain meds every 4 hours and they will keep working him down from there. A radiation oncologist will be looking at the scans to evaluate for local radiation. I am not really sure when we will find out more about it.
Well i guess thats it for now. We still have not even given him a bath so i will write more when we know something about the scans.

Love The Greskos

Wednesday, August 24, 2005 10:30 AM CDT

DAY +14

Sorry for not updating but Trevors appointment to have the line removed and the picc line placed just kept getting delayed and it ended up not being done until the evening.
It was supposed to be short and sweet but somehow ended up taking longer than having his tumor and adrenal gland removed. I told them Trevor needed to be put under with general but they decided to just sedate him. Well i am sure you have all heard me say he does not go under with sedation. Lets just say the Doctors who did the procedure were not happy. They will not even see Trevor for scans without general now. We just hope he doesnt remember what they were doing since he never really feel asleep. But it is all done and the pick line is in and looks much nicer than his old line and seems much more normal.

Yesterday also came with some really good news. Trevors anc was 605 which is really good for day +13 and today it is 1856. So we are now taking him off of the pca (the pump that gives him continuous pain meds) and the iv nutrition is being weaned.

Trevor will be getting a CT scan of his head before we go home to check the tumor that was behind his eye. This is the area that he will get the local radiation. Dr Grupp did however tell us today that there is a small chance he will not need more radiation. They will let us know for sure after the scan.

Trevor is feeling really good though, and is totally fine with the new line in his arm. He is such a little trooper and we are very proud of him.

Love The Greskos

Monday, August 22, 2005 6:24 PM CDT

Day +12

So i will start with Trevors central line issue. The decision was made to pull his med comp which has to be done because scince the line cracked he is at greater risk for infection. He will then have a picc line put in his arm. This will stay in until he produces his own blood products again. So they are hoping to pull it before we go home. Trevor will then need another picc line put in for radiation. So this will mean hopefully some time at home with no tubies which is great but also he will need to be stuck for all of his blood work which stinks but we were going to have to deal with that very soon anyhow. Speaking of being stuck Trevors red lumen on his med comp is still being used but now they are not able to draw blood from it. This is because after the blue lumen cracked it could not be flushed properly. So as for an anc we have no clue. This is kind of scary because we know he probably needs platletes but they are not giving them to him until tomarrow. His whole body is already completely covered in what is called petechiae there are thousands of tiny red dots covering his body and it is so bad he looks almost sunburned. These were a result of his platletes dropping to 7 the other day. They are nothing to worry about and will go away quickly it is just that we would not be able to tell if it got worse, which would be an indicator that his platletes are to low. So any way if they cant get his line to draw he will be stuck in the morning.
He should be getting the picc line put in at 1:00 on tues.
Sorry if this is confusing but it is all really hard to explain and everything seems to change minute by minute.

Trevor also got a vaccine today for ear infections to test his immune systems response from the T cells. Let me tell
you he was thrilled.

On a much better note Trevor feels great. His sore bum and mouth are starting to heal. He is getting weaned from his pain meds. His spirits are great and i know he is looking forward to getting home.

Im sorry if this entire entry is just a big babble. I guess
i to am kind of confused.

Keep praying

Love The Greskos

Sunday, August 21, 2005 3:22 PM CDT

DAY +11

Trevor is feeling much better, day plus 8 was by far the worst. Trevor has been standing up, cracking up laughing at popeye and baby huey cartoons and even had something to drink today. Trevors anc is still 0 but we are not worried in the least because he has to have something going on in there to make him feel that much better. His white blood count is also steadily improving.

Now for the bad news. You have all heard us talk about Trevors central line or tubies as we usually refer to them as. He has a double lumen med comp that was origanlly put in for pheresis (the procedure used for harvesting his stem cells and T cells). Most children have to have the line replaced with a broviac which is basically the same just thinner lines and they usually works better. Trevors med comp worked so well that the desision was made to keep the line. This is an achievment in its self because usually childrens lines get infections or stop working correctly or they can get a crack in them. Well 6 months and 16 days later while having the caps on the ends of lines replaced. CRACK!!!! Yep thats all we heard and we knew it was not good. We are not sure exactly what is going to be done but it will probably happen in the morning. There is a repair kit the nurse found on the internet but everyone is saying that most kids are not lucky enough to keep the line and they are only put in place until pheresis is done so they do not repair them here. Another option is possiably threading a new med comp in the same hole and pulling the old one out. Or having a broviac put in on his other side of his cheast. (that idea does not thrill us and is hopefully ruled out because he is so close to being done treatment). And i believe the last option is a pic line it would be in his arm and much less invasive and could be removed after local radiation is done. So we know this line has to go but scince it is the weekend we do not know much else. We are looking forward to seeing Dr. Grupp in the morning (He is such a brillant man) we know he will decide the best for Trevor.
Please pray that what ever Trevor needs done it will not cause him to much pain or scare him to much.
Also pray for segmented neutrophils (the sooner his anc goes up, the sooner we are out of here).

Love Jackie,Chris,Trevor and Tabby

Friday, August 19, 2005 2:14 PM CDT

DAY +9

Trevor had a really rough night. His mouth was bleeding from the sores, He was throwing up big globs of mucous covered in blood from his mouth. He is having trouble taking his meds because they burn going down and the mouth care is making him gag and or throw up more mucous.

Today though he seems quite a bit better. He has even sat up a couple of times. He needed a blood and a platlete transfusion today. His platletes were only 7 and normal is 150-400. Platletes are the last to recover but he did very well last time, so hopefully this time will be no different. His Anc was 0 but his blood work has been showing monocytes which are immature white blood cells so this is a start. As for his blood cultures they came back negative for infection which is great. Trevor is still running low grade fevers (hopefully just a sign of engraftment) so they will likely be drawing more blood cultures soon. It seems as though as soon as you wait the full 24 hours and get good news you need to do it all over again. Other than that things are pretty uneventful here, The doctors say Trevors transplant is pretty boring which is how we like it. Hopefully yesterday was as bad as it is going to get and Trevors recovery will be quick and easy.

Thank you everyone for the prayers!!!
Love Jackie, Chris, Trevor and Tabitha

Thursday, August 18, 2005 3:18 PM CDT

We are very sad to report the passing of our little friend Emily. Please keep Emilys parents Shannon and Brian in your prayers. There daughter was so beautiful and we will all countinue to celebrate Emilys life.



Yesterday was day+ 7 and Trevor felt pretty good and his anc was 24. Today is day+ 8 and he is feeling terrible. He has not even sat up yet and has a fever. His anc is 0 today but it is normal to bounce up and down for a bit and it is still very early to engraft. Trevor had blood cultures drawn to rule out infection, we will not know those results until 5:00am. I just wish we were able to do something to make him feel better. Trevor will probably feel this badly until his anc number goes up.
Sorry i have to be so short but Trevor still needs his bath which i can only imagine is not going to be fun. Please pray for
Trevor to have a speedy recovery. I will update tomarrow when we know about Trevors blood culture.

Love The Greskos

Tuesday, August 16, 2005 9:26 PM CDT

DAY +6

I would like to start by asking everyone for special prayers for our little friend Emily. Once again they recieved devastating news about her cancer. Please pray for Emily to be blessed with a miracle and also pray for the entire Junz family to keep their amazing strength while fighting this battle.

Trevor is doing really well although it does appear Dr. Grupp may have been right. (Yeah well maybe it is better if he is always right, scince he is the doctor who created Trevors protocal). Trevor started seeming a little cranky today and said his belly and bum were hurting so we had his pain meds increased a little more. He actually sleep until 10:30 this morning which probably has something to do with not taking naps and being a little night owl. He is starting to fight his mouthcare more and more but still loves the medicine. Although Trevor will not be able to go on his make a wish trip for about 6 months due to a low immune system we have started planning it. Trevor looks at the computer and picks everything he wants to do. I think it makes us all feel better to look towards the future.

Well thats it for now i need to get to sleep.

Love Jackie,Chris,Trevor, and Tabitha

Monday, August 15, 2005 6:14 PM CDT

Day +5

Yeah i know i have been slacking, but no news is good news. Trevor is doing really well. His mouth are bum are still a little sore but havent gotten any worse. We had his pain meds increased a little on friday which seemed to make him more comfortable. He has been up and playing all day with no naps. Trevor seems to be in much better spirits. He had his first blood and platlette transfusions yesterday and both gave him a very good boost. The big news of the day is Trevor had an anc of 12. Dr. Grupp says he is not so sure that the number is acurate and that the T cells he got back is making up part of the number and because it is very very early. We say dont be a party pooper (anything is possible). It will probably take a day or 2 to know for sure scince the number bounces around for a few days when the engrafting starts.

Mostly we are all just bored and sick of being in the hospital.The cards and e cards every one has been sending brighten our day though. Tabitha came for a visit this weekend which was really great. Trevor was excited to see her but quickly decided there was no room on his bed for her to sit. She is really getting big, I weighed her here and she was 17 1/2 pounds. I know this sounds strange but i cant wait for the two of them to fight and get in trouble.

Love The Greskos

Friday, August 12, 2005 5:35 PM CDT

DAY +2

Trevor got his T cells back at about 3:30 this afternoon. They have been growing for the last 2 weeks in an incubator type machine over at Univ. of Penn. Dr. Grupp (the doctor who created the study that Trevor is in) came in to give him back his T cells. They were sort of yellow in color and it took about 20 minutes to go in through his line. This is the part of the study that is the most experimental and paid for by a federal grant. We were told the process of expanding his T cells cost $12,000.00. And we will now no longer be able to complain about where are taxes are going because sometimes they are going for really good causes. Trevor did however begin shaking and said he was cold his temperture started to rise but fell just short of the fever mark. This was not unexpected and only lasted about 15 minutes. He has been sleeping ever scince.

Trevor had a really fun day. A magician came by and belive me he was really magic. He gave me a star to hold in my hand he had another in his he told me to close my hand and he closed his he said open your hand and try not to sceam, I was holding both stars. Im not sure if Trevor was quite as impressed as me and Chris were. Also someone came in and sang and played guitar, He got an air brushed tatoo of a spider and finally a foundation let every kid on the floor pick out anything they wanted for under $200.00. We went on to toys r us and Trevor pick the ride on john deere front end loader. They will ship it to our house so he will have it when we get home.

Trevor is feeling pretty good. His bum is starting to get sore but is in good spirits.

Thank you all for the Prayers and support. It truley does take a village to raise a child.

Love you all and miss you!!
The Greskos

Thursday, August 11, 2005 4:01 PM CDT

DAY +1

Today has been pretty good for Trevor. He spent alot of the day running around being silly, he had physical therapy in which he became kind of a mad man with the baseball bat (i only got hit a few times), And we played with playdough like usual. He got hooked up to a PCA this afternoon so he will get pain meds countinuously, he is not seeming to have much at this point but with his mouth beggining to break down they just want to get on top of it. All in all he is doing well. He tries to eat but mostly spits the food out. He is still growling and giving most everyone who walks in his angry eyes and NO is still his favorite word.

It is a very strange feeling now that we are virtually done with treatment. Trevor is definetly ready for all of this to come to an end and that makes it easier to deal with. Trevor is really enjoying all of the cards and e cards.

Well id better go he is giving the nurse an attitude.

Love The Greskos

Wednesday, August 10, 2005 4:43 PM CDT

DAY 0

Stems cells are in and Total Body Irradiation is done. Sorry for not updating yesterday but with going over to PENN 2 times a day we have been very busy. Trevor did well with the radiation and getting put under 2 times a day. He is starting to feel pretty ucky. He threw up last night which really wasnt that bad considering it was the first time he has thrown up. He is already starting to get mucusitous which stinks scince it will be many days before his body will begin to heal itself. The doctors said all of this is normal and that the 2nd transplant is almost always ruffer than the first.
Trevor is being kind of nasty to everyone, when the nurses come in and say hi he yells NO NO NO!!! Yep the boys got attitude but i cant say i blame him. Well i hate to be short but i am tired and hungry. I think Trevors tude is starting to rub off on me.

Oh yeah Trevor smells so bad. It is from the stem cells. I just hope hes not in the mood to cuddle.

PRAY FOR A QUICK RECOVERY!!!!!!!!!!!!!
Love The Greskos

Monday, August 8, 2005 5:15 PM CDT

DAY -2

I must start this entry with saying my 2 year old has just announced that he is going to open the curtins, jump out the window, and go to the car. Thats right he already has his ecscape plan and he wants out.
Trevors day has not been that bad as a whole. He got to see his girlfriend Jillian, Woody wolfe (a really great guy who plays guitar and sings for the kids), and got a whole ton of e cards!
Radiation went well, they take us over or i should say under to univ. of penn. (you go over through the basement) They put him under and start the radiation. The whole thing takes about an hour and we already have two treatments under our belt with four to go. Trevor is having alot of jaw pain from the radiation which is a common side effect of the total body irradiation so this was not unexpected.
I do feel like this stay will be harder on him than the others being that he already wants to go home and we have barely even begun.

Keep praying for Trevor along with all of the other little sweethearts at CHOP.

Love The Greskos

Sunday, August 7, 2005 4:56 PM CDT

DAY -3

Trevor is done chemo. And when I say done I really mean done! NO MORE CHEMO FOREVER!!!!!!!!!!!!!
Now i want everyone who is reading this to just stop for a moment and pray that Trevors cancer will never, never, never come back. Pray hard!!!
I have not mentioned before that high risk neuroblastoma means high risk of relapse. Relapse is treatable but they sadly have not found a way to cure it. This is why it is very important that everyone keeps Trevor in their prays.
Trevor has been considered in N.E.D (no evidence of disease, it is equivalant to remission) for quite some time now which is a great thing. Trevor will not be considered actually cured for 5 years but the likely hood of the cancer coming back after 2 years is very slim. I am pretty sure as time and tests go by we will be able to breath a little easier.
Trevor is doing amazing eating, drinking, dancing, he likes his medicines just like last time, he is just an incredible little guy.
Tomarrow he will start the Total Body Irradiation (TBI).
He will get this 2 times a day for 3 days. He will be under general anestesia during the treatment to keep him from moving. This is all new to us so i guess i will tell you about it tomarrow after i actually see it.
Trevor is also missing his baby sister, she is currently staying with pop pop and nanny McFeeley. She is on a rotating schedual with all of the grandparents which i am sure she is enjoying as much as they are.

I guess that is all for now.
Love The Greskos

Saturday, August 6, 2005 6:02 PM CDT

DAY -4

Trevors chemo is done running for the day. He is feeling very good but is a little bit more sensitive than he normally is. He is already asking to go home and saying no more hospital. I can hardly belive how close we are to actually not having to come back to the hospital. Yesterday marked 6 months scince Trevors diagnosis. Sometimes it only feels like yesterday other times it feels like years.
On a much better note Trevor got to go in the bone marrow transplant play room 2 times today which he really enjoyed.
It is really nice for him to get out of the room for a little while each day. He also has already been doing the booty shake dance for everyone over on 3 south.

OH YEAH JUST A THOUGHT
if you log on to www.chop.edu you can make Trevor an E Card they will print it out for him and bring it to the room. I am sure he would love it. We are in room 3C14.
But there is no pressure.

Love The Greskos

Friday, August 5, 2005 3:07 PM CDT

Well we are all checked in, I posted our new room # and phone # on home page. Trevor was not to happy about coming here today. At the clinic though we saw jillian and her family which is always nice. Brayton, Jillians big brother was giving Trevor some useful advice about why he needs to keep his mask on. It was really cute Brayton is 4. Jillian was having an MRI today so make sure as soon as you read this to say prays for a clean MRI.
Jillians cousin Theresa made Trevor the most beautiful book of poems that she wrote all by her self. It is so nice. Thank you Theresa if you are reading this Trevor loves it!
Last time we were here we filled out an application for the Anjanette Robbins Foundation they buy special gifts for children going through bone marrow transplants. Wow did they ever come through. Tons of rescue heros, play dough, shirts, all kinds of fun stuff. It was like christmas and Trevor loved it.
Well today is Day -5 and Trevor will be starting his chemo sometime tonight. The drug will only run over a half an hour a day each day. We also had a meeting with the Radiation Oncologists from University of Penn (where all of Trevors radiation will be given).
Well thats all for now i really have alot of unpacking to do.
Keep the prayers coming!
Love The Greskos

Tuesday, August 2, 2005 1:29 PM CDT

Ok Tabitha is taking her 3 minute nap and Trevor is pretending to be asleep (what a little goof ball) so i thought i would update on what treatment Trevor will be getting during his 2nd transplant The begining of transplant is called conditioning this is when they kill off your bone marrow to make room for the new stem cells.
We are getting admitted on Fri. Aug. 5th he will get pre hydrated for a couple of hours and then recieve a chemo drug called melphalan he will also get melphalan on sat. the 6th and sun. the 7th. I do not know the dose he will recieve yet or how long the drug will run for each day, I do know this is supposed to be very difficult on there body and cause terrible mucositous (mouth sores that start in your mouth and run through your stomach and out your bum) along with other not so fun side effects. Mon. the 8th, Tues. the 9th and Wed. the 10th Trevor will get Total Body Irradiation (TBI) 2 times a day. Trevor had a day of rest during his last transplant he will not have that during this one scince the TBI will not kill the stems cells. So a couple of hours after TBI is complete he will be getting his stems cells back this will be in the evening on Wed. the 10th. I had metioned that Trevor was also getting his T cells back. They harvested Trevors T cells after his first cycle of chemo. They are manufacturing, expanding or growing (which ever word makes it easier to understand) his T cells out side of his body. He will be getting them back on Thurs. Aug 11th. This is very experimental and paid for by a federal grant. Dr Grupp told us they know that it helps the immune system recover and they hope the T cells will kill any remaining cancer cells. Trevor will most likely experiance a fever and shaking from the T cells.
After this transplant is complete Trevor will still recieve localized radiation and an oral med for 6 months to help find any hidden tumor cells.

I would also like to ask everyone to say prays for Emily a little girl we know with Ewings sarcoma the cancer originaly formed on the scull. Everthing was going great until the other day when they learned the cancer had come back in her brain. Please pray for Emily as well as her family that Emily can beat the cancer.

Love The Greskos

Sunday, July 31, 2005 4:17 PM CDT

Sorry for the lack in updates but no news means good news. We had a great camp out (our tent fell down on us and Trevor was cracking up) after we fixed it we told some scary stories and fell asleep pretty quickly. We have gotten to spend a little more time outside scince the temperture has been a little cooler. Trevor is back to catching bugs again. It is so good to be home and just watch him being his old silly self running, giggling, and shaking his booty. Thats right one of the nurses at chop showed Trevor how to dance. The dance is not quite R rated but probably close to PG13.
Well i guess thats it I will write later in the week and explain Trevors upcoming (Transplant #2) in more detail.

Love Jackie, Chris, Trevor, and Tabitha

Wednesday, July 27, 2005 2:43 PM CDT

Hi everything has been going great here. Trevor is feeling wonderful and eating us out of our house. His favorites are french toast, cream pies, beans and franks, pizza, speagheti o's, doughnuts, pretzles, and lots of choclate milk. Looks like i passed on my carbohydrate obsession to him. Dont get me wrong he is still the same old skinny Trevor he is just eating like a horse.
Last night we lost our power for a few hours and Trevor freaked out, it was pretty funny he was yelling at us telling us to get new light bulbs. (if it were only that easy) Once we found our flash lights he calmed down a bit.
We are hoping for a few cooler days so we can play outside more before our trip back to chop. Our admission date was moved from the afternoon of the 4th to the morning of the 5th, no real difference except now we will have to deal with rush hour. Friday night me and Trevor have a camp out planned we are going to set up tent in the living room (he got a really neat frog tent from my aunt cathy and uncle steve that he loves) When i tell him about our camp out he gets a little scared even though he takes naps in the living room i guess he just thinks it will be different at night.
Oh i also bought Trevor a real cowboy hat that he loves wearing when i get a minute i will take some pictures and post them.

Our friend Jillian is back at chop with an infection. Please pray she gets to go home soon. Jillian has a caring bridge page pa jillian if you get a chance check out her pictures (She is so cute!)

Well i guess thats it for now.
Keep Praying
Love The Greskos

Sunday, July 24, 2005 5:18 PM CDT

I would like dedicate this entry to Trevor and Tabitha's 6 wonderful grandparents. People are always asking us how we do this, well with ALOT of help. My children are so blessed to have these fabulous people in their lives as are me and Chris.
Whether it be finishing construction on our house, Trips to the clinic, Trips to the clinic, Trips to the clinic, Staying at the hospital with us, Helping us clean, Going on shopping trips (normal people complain alot,Doesnt this come in pink, The isles are to narrow, Can you belive how much this cost) come on you guys know exactly what i am talking about. This is when a shopping buddy comes in handy just as i am getting ready to ram someone in the back of their ankles with my cart i can look at my buddy and know that at least one other person in the store knows what i am going through. Helping us to raise our beautiful daughter Tabitha, Going on emergency trips to toys r us when we have run out of our supply of Rescue Heros,Trains or whatever is Trevors latest craze, Always being there when we need you guys, and never saying that we are asking to much. (We really ask alot of favors).
Oh and most importantly being Trevors best friends.
It always make me happy when Trevor makes me leave the room or asks me to stop talking when you guys are over. What little boy wants their mommy around when he is playing with his friends.

And for everyone wondering about Trevor he is doing amazing!

Love Jackie, Chris, Trevor, and Tabitha

Wednesday, July 20, 2005 7:49 PM CDT

Sorry the updates are so far apart we are just trying to enjoy our time at home. Trevor is loving being at home and the king of the castle once again. He is singing the wheels on the bus as i type. He also has enjoyed making Tabby laugh. He is doing amazing!!!

Our trip to chop yesterday was far from uneventful. Trevor has a double lumen central line. The red lumen would not draw blood. Both lines need to be fully functional for the second transplant. If they cant draw blood from both lines and he would get a fever they would not know if he had an infection in either line. So after giving him clot busting meds not once but twice and still nothing they sent us home saying that he would need to have a new line placed. I DONT THINK SO!!!!! I took him to the King Of Prussia clinic today to see if they could help (They are so great there, almost like a second family) Well lets just say THEY FIXED IT!!!!! Wooo hooo!!!!

Trevors blood work came back fine and his counts are holding good. His anc was only 547 but that is expected scince he stopped getting his shot.

Well thats it for now.
Love Jackie, Chris, Trevor, and Tabitha

Saturday, July 16, 2005 3:46 PM CDT

WE ARE HOME!!!!!

Sorry for the delayed update, but everything is going great. We were discharged on friday early afternoon. Trevors anc jumped up to 5390 so we were able to stop giving him shots which he is very happy about. All of his blood counts looked good and it appears his body is producing its own blood products again. We have an appointment at CHOP on tuesday to see the bone marrow transplant doctors and to get a blood count. If all goes well they said we may not need to return until the second transplant admission which is schedualed for august 4th.
I cant believe how soon we have to go back.

Trevor is enjoying spending time at home playing with Tabby. It was like christmas for him to be reunited with all of his toys. He is eating and drinking well. He seems so relaxed just being home again.

Thank you to everyone who has supported us through Trevors treatment whether it was an offer or an act we will never forget how wonderful all of you have been. Please keep the prayers going for Trevor as well as the many many children fighting so hard over at chop.

With Love Jackie, Chris, Trevor, and Tabitha

Wednesday, July 13, 2005 12:46 AM CDT

DAY +15

Everything is going great here. Trevors anc was 837 yesterday and 918 today altough they had said his anc needed to be 5000 to leave they now tell us because he is climbing and has met all other criteria such as holding blood products, eating, and drinking we will still be able to leave on friday. He is actually making his own platletes now which is great. His platlete count was 41 on mon, 46 on tues, and 57 today. Normal is 150 - 400. Trevor is no longer getting iv nutrition and is getting weened of of pain meds.

Wow you would never guess who Trevor played with today. Zoe and Grover from sesame place paid the kids a visit. Trevor even let Grover hold him for some pictures. They gave us free passes for sesame place so that when Trevor is all better we can visit them.

Trevor has been running up and down the hall playing monkey in the middle with the nurses. The mask he has to wear is a little big for his face but he is doing well with it. He couldnt understand why we did not have to wear masks so i simply told him because he is a doctor and mommy is not.

Jillian got to go home today, she did a terrific job fighting off her infections. We will miss seeing her (and her family) dancing in the window but are very happy for her. Good job Jillian!

I forgot to mention that mom mom took Tabby to her 4 month appointment she weighed in at 14 pounds 2 ounces and 25 inches long. It will be great to enjoy a few weeks at home with both of my precious babies.

Well i guess that is all for now. Thank You to everybody for so much support and so many prayers.

With Love The Greskos

Monday, July 11, 2005 4:43 PM CDT

DAY +13

Trevors anc (the number that represents your immune system) was 665 today! Trevor was aloud out in the hallway with a mask on, which he amazingly did not put up a fight about. He was running up and down the hall and was so happy to have a new view. Cabin fever is starting to set in and he is a little on the sensitive side.

His anc needs to reach 5000 to stop the gmcsf shots and to go home. The anc gets cut in half when the shot stops. He also can not be blood dependent. He needs to be able to hold a transfusion over the weekend. Trevor has received 3 blood transfusions and 4 platlete transfusions during this stay which is really not that bad at all. He seems to be holding the blood products long enough already. Thank you to all of the blood donors out there!!!!!!

They have began cycling him off of the iv nutrition and pain meds. They took him off of some of the antibiotics today scince his anc was so good.

Oh yeah, and on a totally different note, the man who picks up the linen from the room came in the bathroom and saw me naked! yep pretty exciting over here at chop!

Love The Greskos

Sunday, July 10, 2005 4:22 PM CDT

DAY +12

Anc is 108
Everything is going great.
Just wanted to let everyone know.
I will update again tomarrow.

We are just busy having fun.

Love The Greskos

Saturday, July 9, 2005 3:13 PM CDT

DAY +11

WE HAVE AN ANC!!!!!!!!!!!!!!!!!!

Trevors counts came back and we are of course happy
White blood count is 1.4
Segmented neutophils 3
Total cells counted 100
ANC 42
I will not post his hemiglobin or platletes until his body starts to either hold the transfusions longer or produce his own. Dont get me wrong we are holding both as long as we should, i just feel it can be a little confusing for all of you normal people out there.
Trevors second set of blood cultures came back good.He has not had any more fevers. When he woke up this morning we knew he had an anc, he is feeling really good!
Mom mom and pop pop brought Tabitha in for a visit today. It was really great seeing her, she is getting sooooo big!
I know i have said this before but what in the world are those grandparents feeding her. Trevor really liked seeing her, he was holding her on his lap and giving her kisses.

Please continue to pray for Trevors fast recovery,
also pray for Jillians infections to clear up, even though we enjoy having her here we now it is much nicer to be home.

P.S. Pop pop the perogies and chili were just right.Thank you!

Love The Greskos

Friday, July 8, 2005 3:44 PM CDT

Day +10

First off the blood culture was negative which is good. Then at about 11:00pm he spiked another fever of about 102.2 so as a precaution they did another blood culture, hopefully this will be negative as well but we will not know until around midnight. Trevor woke up this morning still hanging on to his fever and felling really lousy. After he had his bath and the fever broke he has been sitting up and playing. I wouldnt go so far to say that he is feeling great but he is hanging in there. He did enjoy a piggy back ride from daddy though.
We need some more prayers for segmented neutrophils, first he had one, then two, now zero. This is ok though we were told it is normal to bounce around for awhile.
We are all looking foward to a visit from Tabitha this weekend. It will be really nice for Trevor to get a chance to play with her.

Well we will keep everyone updated. Keep praying for cells.

Love The Greskos

Thursday, July 7, 2005 3:48 PM CDT

DAY +9

Good news first, Trevor has 2 segmented neutorphils today.
Better than one and shows an upward trend. About as soon as i posted yesterdays journal Trevor spiked a fever (hopefully just a sign of engraftment, we will find out this evening if any bacteria grows on his blood cultures) Hopefully all will be good. He also had a reaction to one of the antibiotics, his face got real white and real red in certain spots. They have just been giving him the medicine over 2 hours instead of 1 and we have not had any more problems. Trevors total vomit count has reached 5 which is still amazing. He is still having runny stool (normal to). Trevor is just a little wiped out and spending most of the day in bed. They are putting him on a pca for continuous pain medication as i type. We are thinking he will only need it for a day or two or until his belly heals. The doctors are saying he is doing amazing.
Other than that there is not much going on here except for me and chris fighting over whos turn it is to play games on the laptop.

Love The Greskos

Wednesday, July 6, 2005 2:19 PM CDT

DAY +8

Good job with the prayers, Trevor had one segmented neutrophil found in his blood today. Although one is not a lot it is better than zero and is a sign of engraftment. His anc is still 0 but we are on the way.
Trevor is still having belly pain but the doctors didnt think it is severe enough to require a pca so he is just getting pain meds as needed.
Music therapy came today and Trevor had fun playing the electric guitar and singing. The music therapist sang On Top Of Spegetti for Trevor, Which of course had him laughing.
The doctors said that they are thinking we could be home as early as the end of next week depending on his counts.
Trevor is really missing Tabby so mom mom and pop pop are bringing her up to visit this weekend. Other than that everything is going great although we are all getting a little stir crazy.
Well we will keep you updated. Please Keep up the good work praying.

Love The Greskos

Tuesday, July 5, 2005 3:42 PM CDT

Day+7

Sorry for not updating, we were just enjoying the holiday.
Trevor had a good day playing with pop pop and nanny. He has been feeling a little tired and has some blood in his stool along with belly pain. This is all totally expected.
The mucusitous from the chemo causes sores starting in your mouth all the way through your insides and out your bum. Trevor seems to have only gotten the sores in his belly which is great. He has only gotten 2 doses of pain meds as yet but we have asked for a pca so he will get a continuous small dose of meds. We are hoping to see some segmented neutophils in his labs soon these are imature white blood cells and are the first sign of engraftment.
As soon as his counts come up the sores will heal.
All in all though he is still the same old Trevor. Daddy was giving him piggyback rides today which Trevor loved!

Please pray for segmented neutophils (i know it seems strange but is very important).

Love The Greskos

Sunday, July 3, 2005 3:16 PM CDT

DAY +5

Everything is as it was which is a good thing. One bad thing that happened today though was when his dressing was changed he got a skin tear from the dressing. It is not near the site just where the edge of the bandage is. We will be using a smaller dressing next time to let the area heal. Other than that Trevor had a great day Playing hide and seek with Aunt Steph and teaching Uncle Robert how to pick up nurses. He will start getting his GMCSF shots tonight to help his counts recover.
Trevor not only enjoys his meds and mouth care still but now gives them to him self. The nurses are impressed.
Well i guess thats it for now.

Please continue to pray for Trevor.

P.S. (Steph and Robert)Thanks for all the great food!

Love The Greskos

Satuday July 2, 2005

DAY +4

Well we are offically out of what the doctors call the honeymoon period. Day +4 to Day +9 are supposed to be the worst but we are still doing great. Trevor received a platlete transfusion today ( just after he took a spill on the bathroom floor ). No worries he is just fine. Nothing else to report everything including his vomit count (which i am sure is much appreciated) has remained unchanged.

The only intersting thing is Trevors discovery of the song
On Top Of Spaghetti. He is making me sing it over and over again and if i stop he cries "where did my poor meat ball go".

Hope everyone has a great 4th of July.
Love The Greskos

Friday, July 1, 2005 6:07 PM CDT

DAY +3

Things are still going great. We have found every possible way of turning medicals supplies into fun. We will teach them for keeping us pened up in a room for a month! I cant imagine what the insurance company will say when they see how many supplies we have used.
Our throw up count has only reached 3. Which i am obviously happy about. Trevors platletes were only 24 today so he will definitly need a transfusion in the morning.
Other than that there is nothing to report which is a good thing.

Please keep praying for Trevor and the many other children and familys fighting cancer.

Love, The Greskos

Thursday, June 30, 2005 8:24 PM CDT

Day +2

Trevor is still doing great. His vomit count has only reached 2 which is apparently pretty amazing. He is still eating, drinking, playing, and really amazingly still enjoying the mouth care and meds. The doctors say this is a first. He had a chance to be unhooked from the pole for about 2 hours today and the boy went crazy, he did about a hundred laps around the room clapping his hands and hollering "woo hoo i am free"!!!!

There is alot of anticipation for mucusitous (mouth sores and so on) which usually start to to get bad around day +4. Our theroy is no thanks we are way to fun for that!

Pop pop McFeeley wore Trevor out good today so i am going to go and relax scince he is finally asleep at a decent time.

P.S. Thank you Aunt Janny and Uncle Pierre for the emergency delivery of pop tarts.

The Greskos

Wednesday, June 29, 2005 11:35 AM CDT

Sorry for not updating we have been busy playing. Trevor likes to put on dance shows through the windows at night for everyone over on 3south. Yesterday was day 0 the day he received his stem cells back. The stems cell are given back in a syringe by a simple 10 second push through his central line. They are treated with a chemical called cd34 which when injected has a god awful smell. Lets put it this way Trevor was a very stinky little boy. He also received his first blood transfusion yesterday.

So today is day +1 and we are doing great. He did however throw up a little for the first time this morning but otherwise he is eating,drinking,and playing.
So all in all we are doing great!

With love the Greskos

Monday, June 27, 2005 6:45 PM CDT

DAY -1
Everything is going great. We are done chemo and have started the intraveinous nutrition. Trevor is still eating but they do this anyway. He still has not needed any blood products and is doing amazing. Trevor will be receiving his stem cells back sometime tomarrow in the afternoon.
well we are really busy playing so i will keep this one short.
Thank you to everyone for signing the guestbook, also thank you for all the beautiful cards that have been sent to the hospital. And last but not least thank you for your prayers.

Check out the new pictures of Trevor!!!!!!

Love The Greskos

Sunday, June 26, 2005 2:16 PM CDT

Day -2
We are still doing great. Trevor woke up 2 times in the middle of the night with some dry heaving (totally expected with this type of chemo). But other than that things have been uneventful which is of course a good thing. Trevor will be receiving his last dose of chemo (for this transplant) sometime this evening.
Trevor enjoyed a day playing with mom mom and pop pop Gresko, Watching his new Tarzan movie courtesy of mom mom, and shooting everyone who walks through the door with his rescue heros.
Things are expected to be worse next week, but we are taking every good day as one less bad one. Trevor is such a little trooper. We are very proud of him.
Trevor still has not needed any transfusions but is expected to need blood tomarrow. Tomarrow is a day of rest for Trevor and then on tuesday he will receive his stems cells back. We have heard a rumor that the new bone marrow Transplant play room will be opening tomarrow. Only one child can use the room at a time and everything will be cleaned between kids. There is only one other little boy getting a transplant at this time so they will be able to switch back and forth all day.(Trevor Would love it).
Thank you to everyone for all of your prayers.
Love The Greskos

Saturday, June 25, 2005 5:13 PM CDT

DAY -3
Trevor is still doing amazing. Him and pop pop Mcfeeley had a great day playing with new toys and play dough (thank god for play dough). We stayed up late again last night and then we decided to take some benadryl mainly used to control vomiting but since we dont have nausea we thought it sounded like a good idea for an overactive child. Trevor is done with his carboplatin and etoposide, He will be getting his 660mg of cyclophosphamide around 11:00pm and then again tomarrow afternoon. After that we will be done with chemo until the 2nd transplant. yeah!
His counts have began falling his anc is 459 so we have began isolation his white blood count is 0.9 his hemiglobin is 9.0 and his platletes are 131. Luckily we have not needed any transfusions as yet.
Well i just wanted to let everyone know how great he is doing. I hope everyone is enjoying their weekend and the warm weather. Oh did i mention with this chemo he will get tonight and tomarrow Trevor will need diaper changes every 2 hours. Looks like im in for 2 long nights.
Well that is it for now.
I will write again tomarrow.
With Love The Greskos

Friday, June 24, 2005 12:50 AM CDT

12:45am, Yep thats what time we were up til last night (we meaning mommy and trevor)He was growling and pretending to be a monster. He is really feeling good and still eating and be bossy and still very much enjoying meds,mouthcare, and baths. His anc was 1035 today so tomorrow we will start isolation. It does appear he may need a blood transfusion tomarrow, but platletes should still be ok. He will soon be needing transfusions daily until he starts producing his own blood products again.
Well it seems day -4 is going great. Please continue to pray for good days.(you guys seem to be really good at praying because they are working).Thank you every body it is great having such wonderful people helping us through such a hard time.
Love The Greskos

Thursday, June 23, 2005 2:49 PM CDT

We are having a very good day! Dancing on the bed, playing play dough, watching popeye and a bootleg of madagascar that is going around the hospital. Although his anc is over 2000 we are not letting him out of the room, we think it is safer to keep him in. Trevor thinks the hallway is brokendown. Mouthcare and meds are still quite enjoyable to him. Today is considered day -5. For the first 3 days Trevor is receiving carboplatin 245mg over 1 hour and etoposide 290mg a day (this runs 24 hours a day) on saturday and sunday he will be receiving cyclophophamide 660mg a day. This is the chemo that is expected to make him the sickest. Well i guess that is it for now. I hope we continue to have great days.
Also please keep the Thomas family in your prayers their son has relapsed with leukemia while on treatment and the cancer has come back very aggressive.
Hope everyone is enjoying the nice weather.
Love Jackie,Chris,And Trevor
P.S. We miss you Tabby.

Wednesday, June 22, 2005 9:21 AM CDT

So we are all moved in. Yesterday was a free day so we spent alot of time outside. Trevor was feeding the city chickens and really had a great day. Today is day negative 6 and chemo is being hung as i type. Trevors mouth care and meds started this morning and he amazingly liked both. He is not on isolation until his anc drops below 1000. From that point on all visitors will need to wear mask ,gown, and gloves Trevor will be on mask precautions for 3 months after his 2nd transplant.
Only one parent can stay in the room each night so Chris stayed at the ronald mcdonald house last night but our room does not have its own bath which kind of makes us germ aphobics leary. We are going to request a room upgrade to try and get a room with our own bath. The rooms are $15.00 a night whether you have your own bath or not.
Well i guess that is it for now. We will try to keep you updated daily.
Love The Greskos

Friday, June 17, 2005 2:38 PM CDT

It looks like we have some good news, Trevors mibg scan was normal (normal means really good) Trevors mibg scans have been coming up normal scince he finished cycle 2. Prior to that his entire body lite up. So we are very pleased with the results. Trevor has been doing great and enjoying the time we have had at home. I on the other hand have been having a difficult time dealing with what is to come. It is very upsetting having to put your child through so much, but we know this is his best chance to beat the cancer. We are getting admitted on tuesday the 21st. Here is a little time line for transplant.

tues. the 21st day -7 iv hydration
wed. the 22nd day -6 highdose chemo
thurs. the 23rd day -5 highdose chemo
fri. the 24th day -4 highdose chemo
sat. the 25th day -3 highdose chemo
sun. the 26th day -2 highdose chemo
mon. the 27th day -1 a day of rest
tues. the 28th day 0 transplant day

Then we will wait for Trevor to engraft which will be the most difficult and painful time for him. It takes about 2 weeks to fully engraft the new stem cells.

Please continue to keep Trevor in your prayers through the difficult road ahead.
love Jackie

Sunday, June 12, 2005 7:23 PM CDT

We would like to send out a THANK YOU to all the members of the American Legion Post #537 for the chicken BBQ benifit cookout and yard sale. We would also like to send out a special thank you to the following people for the exceptional job they did to make it such a success. Thanks to *Billy, Shirley, Dan, Both Vicki's, Nicki, *Paul, Sharon, *Craig (Crazy), Ed, *Brownie, Diane, Karen, *Hank, *Jason, and of course Kevin Pennabaker. If we forgot anyone's name PLEASE forgive us. (The names with an asterik in front are remarkable men who shaved their heads to help raise money for Trevor. Unbeleivable!!! Thanks guys!)

It is truly amazing to see total strangers that we have never met do such a good deed for our child. It is amazing to see the community pull together for a good cause. It has given us new faith in people. In a World where we all live such busy lives and barely have enough time to ourselves, We Never in a million years would we have thought that people could have so much generousity in helping out little boy for whom they have never met. We promise that someday in the near future when Trevor is rid of this terrible disease, we will give him the chance to meet all the inspirational people of AMERICAN LEGION POST #537. Again, thank you all so much. mjnht0oouh nnhfhhv (That was Trevor saying, THANK YOU.)

The Gresko's.

Friday, June 10, 2005 7:21 PM CDT

Just wanted to let everyone in on the good news. when Trevor was first diagnosed his bone marrow was 95% cancer after 2 cycles of chemo they only found one spot and the latest test show 0% cancer!! Thank god! The doctors had told us at the transplant meeting they thought Trevor was in remission but if the stopped treatment now 7 in 8 children would relapse. They also said he has had the best response to therapy that is possible.

Please keep praying for Trevor.

love the greskos

Thursday, June 9, 2005 4:54 PM CDT

Hi everyone sorry for not updating sooner but with transplant fast approching we are trying to enjoy every extra minute we have. Today Trevor had his bone marrow biopsy and aspiration and amazingly he has no pain from this. I am also not sure when i will find out the results. The mibg injection never arrived at chop so tomarrows tests are postponed til next week. Trevors counts were amazingly good today. white count was 17. anc was 6800 and platletts were 266. Although these were great it also means he is ready to go to transplant and although i thought i was ready for this i am not. When the nurse asked if we wanted to come in the begining of next week or wait til the following one i could not answere her all i could do was cry. Chris then helped with the desision and we will be giving Trevor an extra week off and will be admitted for the first transplant on june 21st.

On a better note we got to see Jillian (trevors friend) and her mommy today. Although they dont say much to each other i think Trevor really has a thing for her because he likes to talk about her later. (i think he is a little shy when it comes to children his age). Jillian is amazing she has undergone radiation for 6 weeks everyday with general anestestia and she looks great.(kids are so amazing)!!!

Hope everyone has been enjoying the weather.
p.s. check out the new pictures.

love jackie,chris,trevor,and tabitha

Friday, June 3, 2005 2:10 PM CDT

We are home from another long day at clinic. Trevors counts are terrible! Trevor needed a platlet transfusion today and is anc is 0 (not good) but hopefully they are on the rise. His white blood count is 0.1 (reallllllly low)!
He has been feeling good other than the cough and hopefully we can make it through this low point without getting sick.
He also has been constipated and having alot of pain in his belly, but he managed to take care of that today and let me tell you he really took care of it. Me and grammy had alot of fun trying to clean that one up. Sorry if im being to graphic but scince some of Trevors favorite new words consit of poop and fart and many others that are far worse i find i am much less prudent than i used to be.(whatever makes him laugh).
We will be going to clinic mon. to see if our counts are coming up yet then we can stop giving him the shot(yeah)!
We have quite a few test at the end of the week that are really important(bonemarrow biopsy and aspirate,mibg scan and ct scan)Please pray that all of these test come back good.
Well i hope everyone has a nice weekend. I hear it is going to be a hot one.
love the greskos

Tuesday, May 31, 2005 1:24 PM CDT

Hi everybody just wanted to update you on how things are going. Trevor had a dentist appointment fri. (pre transplant testing) it went great no cavities. Friday night we ended up going to chop er his central line clotted off but by the time they got the meds to fix it, it had fixed itself. I wanted to take Tabitha up stairs to meet jillian but chris insisted onco parents get little enough sleep as it is and no one would appreciate my midnight visit. My thought was what sleep 12am or 12pm (whats the differance).
So now we are on tuesday and we had a clinic appointment Trevor has a nasty cough we will be watching they said it did not qualify for a chest xray today but we will keep our eye on it. He has no other symptoms of illness. Trevors anc is only 100 and still falling. He needs to go back to clinic for a transfusion tommarrow. There were a few things from our transplant meeting i had not metioned Trevors tumor carries the nmyc gene it amplifies each cancer cell 200 times, a normal cancer cell duplicates by 2. This does not change his survival rate those with the gene or without it do the same. It just means Trevor had stage 4 cancer from the first day he had cancer. Also they told us even if we had caught it that very day it would not change treatment or survival rate. We also found out trevor will be receiving his T cells back a couple days after the second transplant. There are 2 arms on the study one for early t cells and one for late t cells they are doing this because t cells have never been used this way before and they dont know which if either is better. I will explain the transplants in more detail when we get closer.
Well i think that is all for now. Please say special prays the trevors cough does not turn into something worse.
love the greskos

Thursday, May 26, 2005 7:51 PM CDT

Once again we are home. Trevors 5th cycle of chemo is down and done. He is doing great and although he did vomit once this morning after seeing my mcdonalds breakfast (i cant say i blame him)he brezzed through. We were told that during this cycle most kids puke their guts up. Sorry for not updating earlier but we were very busy. Trevor needs a ton of testing before transplant and it is much easier to get some done while we were in patient. He had a hearing test(he has lost a little high frequency hearing which is normal)he is expected to lose more in transplant(some children will need hearing aids). He had vision checked. He also had a GFR test which involves injecting radioactive dye to test kidney function. Finally he had an ECHO and an EKG. We also had his transplant meeting and because im nosey by nature there were no suprises. I have already asked so many questions that our meeting was very short. Some effects from transplant are sterility (this is 100Cataracts (probably about 90ecause Trevor will need localized radiation of his orbits, we have been told these are very easily removed with surgery though) and like i mentioned earlier some kids will require hearing aids but a much smaller percent. Of course their are many other more dangerous side effects as we know but we are hoping to get by without them. Oh i guess i didnt mention mucousitis (mouth sores and skin sores huge and painful also a fun part of transplant). Well i know im leaving a lot out but i have got to get the little guy to bed (we have to be at the dentists at 7:30am to make sure we have no cavitys before transplant. Then we will pick up Tabby from grammy Sheetz (we cant wait to see her).
with love
the greskos

Monday, May 23, 2005 8:15 AM CDT

WOW!!!
Last nights dinner was so amazing. What a wonderful feeling it was to see a room full of people taking time out of their day to show support to our family. Their were so many people working so hard on our behalf from the cooks, waitstaff, event orginizers, ticket sales, raffles, baked goods, setup people. It was breathtaking! What an amazing Parish Robeson Luthern church is. And what a blessing it is to have a Pastor like Pastor Sue. She has helped our family so much in dealing with this situation. I will never forget after Trevors first set of scans how disapointed i was, although the scans came back great i had been looking for an overnight miracle Pastor Sue told me that miracles can happen slowly. This is a phrase i remind myself of constintly. I also was so amazed at the amount of community support. so many local buisnesses pitched in to help our family. This was truly a life changing event for us. We will never look out of the same eyes again. There is no greater feeling than standing in a room full of people (friends,family,parish members,and even complete strangers) knowing that everyone there cares about us and prays for our baby.
THANK YOU ALL SO MUCH FROM THE BOTTOM OF OUR HEARTS!!!
With all of our love
Jackie, Chris, Trevor and Tabitha

Saturday, May 21, 2005 7:36 AM CDT

WE ARE HOME!!!
We arrived home last night at about 6:30. Trevor was happy to pick up Tabitha from mom mom and pop pop Gresko. He is doing amazing and is off all pain meds(he doesnt even need tylenol)which is great for just having major abdominal surgery. We will get to enjoy a long 3 days home before heading back to chop on tuesday for his 5th and final cycle of standard chemo. Unfortunatly the chemo he will get during his transplants will be high dose. We will be having our transplant meeting during this admission. We have been warned this meeting is not pretty and transplants are no walk in the park. I am looking forward to making Tabithas big debut at the dinner on sunday. Unfortantly Trevor will not be able to attend as most of you know it is very dangerous for him to be exposed to large groups of people. Boy i cant wait until we can take him places again.
with love,
jackie,chris,trevor&tabitha

Friday, May 20, 2005 7:37 AM CDT

sorry for taking long to update. Trevor is keeping us busy, he spent yesterday cruising the halls in a little car and as long as he can walk today he is free to leave. Dr mattei said he is his star paitent. we will be back in next tuesday for Trevors 5th cycle of chemo. We will also be having our transplant meeting. Well im going to cut this one short we have to get him walking.

Wednesday, May 18, 2005 3:37 PM CDT

I would first like to say Thank you Thank you Thank you! Our prays are being answered. Trevor has been awake scince 5:00am with no nap. We swiched his morphine to delauda (i was just sounding that out i cant spell.) It is working good for the pain and doesnt make him drowsy. He trys to sit up but then stops and crys a little but overall he feels good. Daddy went home today and pop pop mcfeeley is staying until friday afternoon then daddy will come back.
He is having a good time playing We are staying in 3central instead of 3south same floor but on the bmt transplant side.
The rooms are very small but its better to get used to them now scince we will be spending alot of time here.
gotta go Im needed in the room.

Tuesday, May 17, 2005 5:11 PM CDT

Hello everyone. Trevor finished surgery at about 10:30 this morning. It went very well and very quickly. The surgeon was able to remove the entire tumor and also removed the adrenal gland. He is in a lot of pain but when he is awake he is the same old Trevor. He is very uncomfortable with the tube that is in his nose to drain air and fluid out of his stomach (but this will only be in for 24 to 48 hours).
He also keeps saying "sit up" and "out of bed". We love the fight that he has in him. I would just like to say how proud i am of my little boy and how honered i am to be his mother. I will write again tomarrow he does not like when i leave the room.
Thank you everyone for your prayers!!!!!!!!!!!
love jackie,chris,trevor & tabitha

Monday, May 16, 2005 1:19 PM CDT

Today Trevor had a clinic appointment to check his anc it was 756 not great but good enough to proceed to surgery which has been reschedualed for (tuesday may 17th) tommarrow. He has been feeling great and we have been having so much fun hanging a big rubber spider out the window and scaring everyone who comes to the door. We have decided against the epidural and uninary cathiter (i just think it will be to disturbing for him) and decided to go with morphine which he has had before and done well with it. I know we just had a practice run but this surgery is so important so please do not forget to pray for Trevors saftey, quick recovery, and success in removing the entire tumor, also that he remains infection free. I will try to write as soon as i can tommarrow to let you know how things went.
with love
Jackie, Chris, Trevor, and Tabitha

Thursday, May 12, 2005 10:35 AM CDT

We were sent home! Trevors ANC which is the number that represents your immune system was 490 it needed to be a bare minimum of 500 but it really should be at least a 1000 for surgery. Surgey is going to be reschedualed for early next week. But the trip was well worth it Trevor got to see Jillian (she is a friend of his from the hospital).
Tabitha also had a doctors appointment yesterday and weighed in at a whopping 10pounds 10ounces.
what are those grandparents feeding her?
thank you for all of your prays. we will keep you posted when we find out the date for surgery.

Tuesday, May 10, 2005 7:22 AM CDT

Wow yesterday was a looooooooong day. we ended up having more appointments then we bargained for and ended up leaving chop at 6:15. Bottom line as long as Trevors blood counts come up surgery is schedualed for thursday may 12th. Dr. mattie (the surgeon) was great. He said it looks very promising that the whole tumor can be removed his left adrenal gland will also be removed. He said there are a couple lymph noids he wanted to take a look at but the kindey should be a keeper. He did however tell us neuroblastoma tumors sometimes look very different inside than on the ct scan and they are sticky like bubblegum. He said the surgery should take 2-3 hours. We still have to make the desion whether we want an epidural for pain control which would also mean a catheter (yuk)!!!
We also still have not gotten the final word on whether Trevor will need a new central line.
WE ASK EVERYBODY TO PRAY FOR TREVORS SAFETY THROUGH SURGERY.
PRAY FOR THE SURGEON TO BE ABLE TO REMOVE THE WHOLE TUMOR SAFELY.AND PRAY FOR TREVORS QUICK RECOVERY.
ALSO PRAY HE WILL NOT BE TO SCARED OR IN TO MUCH PAIN.

Wednesday, May 4, 2005 5:27 PM CDT

Good news! Trevors ct scan showed considerable shrinkage of the main tumor. The oncologist said she thinks it looks good for surgery but it is not her call. We meet with the surgeon on mon. may 9th to find out when it will be schedualed. there was however two small spots one on each lung they had never seen before but they were pretty sure it was do to his cold not cancer. Trevor still looks like a drunken sailor from his sedation earlier. Even given his maximum sedation dose of meds he continued to talk and make sense for about a half hour. He wakes up as hard as he falls asleep though. Trevor also got a platelet transfusion today (his platelet count was 10,000 normal is 150,000 - 400,000) so now he is aloud to fall again, a tough restriction to put on a two year old. Trevor has an appointment on friday at the onco clinic to see if his blood counts are recovering and we can stop his shot.(a shot given between each chemo).Thank you everyone for praying and thank you for writing (words of encouragment are greatly appreciated)!

Saturday, April 30, 2005 7:57 AM CDT

Hi everyone. Trevor is doing well although his nose is still running. His appointment Friday showed his counts were still good enough so Monday he has an appointment at chops king of prussia onco clinic (much closer and nicer than the main onco clinic) to get a blood transfusion and he may also need platlets. Wednesday he will have a ct scan of abdomen,pelvis,and chest to see if the main tumor/adrenal gland can be removed before his 5th cycle of initial chemo. This would be better than removing it after cycle 5 because if we wait he will be going to transplant and high dose chemo shortly after and it will give him less time to recover. His last ct scan showed good response to therapy and we ask everyone to pray for another good scan. Trevor typically has 3 onco clinic visits a week but only one schedualed as of yet. Monday may 9th we will meet with Trevors surgeon Dr. peter mattei (he is chops best neuroblastoma surgeon)and find out if and when surgery will be schedualed. They also will be replacing Trevor's central line (medcomp or as most of us know them as tubies) with a smaller line called the broviac. The doctors tell me i will be much more comfortable looking at it and it requires less maintnance. I think i will be more comfortable when its gone for good.
Dont forget to pray for Trevors scan on wed.
thanks,
jackie

Tuesday, April 26, 2005 2:16 PM CDT

Trevor was discharged from the hospital at 9:00pm. His blood work showed no sign of infection or bacteria. Trevor still has a bad cold but otherwise doing great. I have been reading him everyones letters and to tyler trevor cant wait for you to make him laugh either!

Sunday, April 24, 2005 9:25 PM CDT

Sorry to report trevor spiked a fever of 102 and was readmitted. he will be treated with antibiotics for several days. trevor still has enough energy for ten of us even as i type he is running the halls. (it is was past his bedtime).we will keep you posted.

Saturday, April 23, 2005 8:50 PM CDT

Trevor was discharged today after finishing cycle 4 of chemo. He did incredible no vomiting but a little nausea.
He breezed through with his regular routine late to bed early to rise. Belive it or not Trevor seems to enjoy the hospital and loves flirting with all the nurses. There will be a ct scan before cycle 5 to see if he can have surgery on his main tumor before the next cycle of chemo.

Friday, April 22, 2005 3:22 PM CDT

TREVOR WAS ADMITTED FOR HIS 4TH CYCLE OF CHEMO ON THURSDAY AND WILL BE FINISHING UP ON SATURDAY AFTERNOON. HE IS DOING GREAT! HE IS KEEPING MOM MOM GRESKO AND ME BUSY.

Click here to go back to the main page.

----End of History----