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Daniel's Page

Welcome to Daniel's Web Page. Here you'll find updates on his progress throughout his treatment for Neuroblastoma.

On April 6, 2005, Daniel was diagnosed with Stage III, intermediate risk, non N-Myc amplified Neuroblastoma with favorable histology. The tumor was found to be on both sides of his neck.

At 5 months old, we noticed something wrong with his right eye. He was diagnosed with Horner’s Syndrome and had an MRI that showed no tumors and the blood and urine tests came back negative. However, it did show what they thought was a swollen lymph node on the right side of his neck. We waited 6 months until Daniel was 1 year old and repeated the MRI. This time it showed that the lymph node had gotten significantly bigger. We were referred to an oncologist, and had a biopsy done. On April 6, 2005 (almost 14 months old), we got the news that it was cancer. So far, and to this day, Daniel has been a healthy, happy, adorable, loving little boy. He had no other symptoms. Daniel had a central line port surgically placed in his chest through which he received 4 rounds of chemotherapy (A3961) at CHOP and as of July 28, 2005 he is NED – No Evidence of Disease! We were fortunate to have been given a sign to catch this early. Most cases go undetected until they reach a later stage.

Thank you very much for visiting Daniel's page and following our journey.














Journal

Tuesday, February 10, 2009 10:00 AM EST

Happy 5th Birthday Daniel!

Daniel 5th Birthday


Watch the video, Our Littlest Soldiers, which Daniel has a big part in narrating! The video below is Daniel reciting the entire poem. Great job Daniel!





Disney Family Photo

Link to ALSF on your own site!


PLEASE SIGN DANIEL'S GUESTBOOK !
WE WOULD LOVE TO KNOW YOU STOPPED BY !



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Read Journal History


Sign and view the guestbook
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View personal photos

View Photos

Hospital Information:

Patient Room: At Home in Havertown, PA

The Children's Hospital of Philadelphia
34th Street and Civic Center Boulevard
Philadelphia, PA 19104
215-590-1000

Links:

http://www.lunchforlife.org   Lunch For Life
http://www.alexslemonade.org   Alex's Lemonade Stand
http://www.kidscancercrusade.org   Link to Kids Cancer Crusade Website


 
 

E-mail Author: barbe2700@yahoo.com

 
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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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