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- your browser may not have loaded the new page. Click here to sign the guestbook. Click here to go back to the main page. Hey Cohen I had no idea what you've had to endure ! I just wish you all the best and I'm not even sure I understand the full scope of your illness but kia kaha.. sending prayers your way Sapphire Koopu aka Sapphire loves diamonds <cerseijenns@gmail.com > Auckland , New Zealand - Saturday, October 31, 2015 0:13 AM CDT Hey Cohen. Thanks for sharing your site with me Brother. Youve educated me on something I never knew existed. Your a fighter though man. Never let anyone take that from you.Stay strong buddy and keep in touch with me on FB.. :) Chris Huchingson - Wednesday, October 23, 2013 11:17 PM CDT Hi Cohen. I know u through ur mum. Have been thing about u and ur struggle with Nf. How are the legs, have the doctors managed to find the right medication for u. XX Elaine Day <Librahealthcare@aol.com> Tonbridge, Kent England - Wednesday, November 28, 2012 5:11 PM CST Hi Cohen, I have come and gone from your CB page a few times. Life sux for you right now, but know that many people really do care about you and your family esecially the MAD mob from Facebook. Life has chucked you a lemon and most days you have made lemonade from it, but right now things are a bit sour. If we could sweeten life for you we would. ((((((((((hugs)))))))))))) Sue Collier <suebarrycollier@gmail.com> Cambridge, New Zealand - Wednesday, November 28, 2012 0:44 AM CST Happy Birthday Cohen. You are a true inspiration to many. One of the hardest things in life is to accept what you cant change. You will climb this latest mountain. Hope you have a fantastic birthday and get spoilt rotten. TM landylass Oamaru , NZ - Friday, July 20, 2012 4:57 PM CDT Hi Cohen, Happy Birthday - hope you have a fantastic day. Have been thinking of you as you face your latest challenges and sending my best wishes. Still haven't got my Kindle, how's your progress towards an iPhone ;) Lots of love to you and all the family, Cheryl xo Cheryl McClure Christchurch, New Zealand - Friday, July 20, 2012 3:13 PM CDT Happy Birthday Cohen!!! Have a great day young man. Michelle - Friday, July 20, 2012 2:40 PM CDT Cohen you are going through a difficult time at the moment & it can't be easy for you especially being young & not able to get out & do the things your peers or mates are doing. I think you are a very gutsy strong young man & was so pleased you acheived the most votes to go on the adventure. That was cool. I have not had cancer myself but have travelled the journey firstly with my Dad & then with my husband who sadly lost his battle 3 years ago. Stay strong, take care & big hugs to you & your family as you all travel this difficult journey. Anne (velia <anneerrol@xtra.co.nz> Hawkes Bay, - Monday, April 9, 2012 1:28 AM CDT Cohen you & your family are in my prayers, your battle has been long and hard, keep it up mate, it will have made you wise beyond your years and many people old and young are learning hope 7 strength through you. I am sure there are times when you are tired and frightened, just know that there are a lot of people praying for the right outcome for you... I pray for a miracle. Sue Collier <suebarrycollier@gmail.com> Cambridge, New Zealand - Monday, April 9, 2012 0:16 AM CDT Hi ya you lot. I cant say anything that hasent already been said, but i will say>> This to will pass, My grand mother use to say that. when things are dreadfull or absolutly apalling or when things are superb and wonderful and marvelous and happy. those four words will give you a sense of perspective. Gary (shuballs) <garyy@xtra.co.nz> Kawerau, n.z New Zealand - Sunday, April 8, 2012 11:56 PM CDT Hi Cohen and family, You are an inspiration to us all. Love and Hugs xxx Pauline Faiers <pfaiers@xtra.co.nz> Hastings, New Zealand - Sunday, April 8, 2012 9:44 PM CDT I know it is hard to stay strong and put on a brave face all the time. It's ok to break down and cry and rage if you need to, we are human and do get overwhelmed. Our thoughts are with you. Allen Wilson <wvpackerfan68@yahoo.com> Baltimore, MD USA - Sunday, April 1, 2012 9:25 AM CDT hey c u @ CanTeen summer camp if ur going, i think i am. other wise will c u round CanTeen somewhere :) Samantha De Graaf - Saturday, December 3, 2011 5:47 PM CST Check out daktory on Facebook and also Cohen as well , busy fundraising to obtain a laptop for him to continue schooling , so if you can make a donation please do. Lee <chrisynz2010@slingshot.co.nz> Invercargill, New ZEaland - Tuesday, October 11, 2011 4:31 AM CDT Hi Cohen and family, Thanks for sharing your experiences with this situation and hope that you can only be stronger for it. Hang in there Cohen, in spite of the struggles of going through this, you are doing well. I have prayed for you guys. Lisa Lisa Shaw Wisconsin United States of America - Monday, October 10, 2011 12:05 AM CDT Hi Cohen and family - you are very strong. Keep smiling! All the best to you all. Banker Auckland, - Sunday, October 9, 2011 8:23 PM CDT Helloo Cohen and family ... my prayers ,thoughts and good wished go out too you all ((( hugs))) Gaelene Cole <pooby59@hotmail.com> Waitara, New Zealand - Sunday, October 9, 2011 1:28 PM CDT Hi Cohen. I have read of your struggle -just want to wish you well and acknowledge your courage . Good on you. trish wairoa, Hawkes Bay New Zealand - Sunday, October 9, 2011 7:28 AM CDT Hello Cohen, Kia kaha, be strong, and be brave. You are in my prayer. I have met you just a couple of minutes when your parents delivered the kitten (Neko) which I renamed Nico. You and your family will always be in my heart. God bless and keep you safe. Felix Lai <galfie24@yahoo.co.nz> Christchurch, New Zealand - Saturday, October 8, 2011 6:05 AM CDT Hello from the Perry family .Best wish's for you all . sheryl perry <southland@airnet.net.nz> Hastings, new zealand - Saturday, October 8, 2011 4:34 AM CDT Keep fighting :) Your not alone...you have an amazing family! Looking forward to seeing the updated blog...Never give up... Leah Bennett Central Otago, - Saturday, October 8, 2011 4:11 AM CDT I wish you all the best and will hold you in my prayers. You are indeed an incredible young man, showing strength in the face of adversity, an inspiration to us all. xx Gill Wallace - Thursday, September 1, 2011 10:39 AM CDT You are in my prayers dude. -stealtrecon- Evan Lindsay <evanlindsay@live.com> port orchard, wa - Wednesday, December 15, 2010 8:43 PM CST Best of luck, you are in my prayers Al Catraz - Saturday, August 21, 2010 1:51 AM CDT praying for you jamie ohio, aussie usa - Friday, July 30, 2010 9:07 PM CDT A warm hello from Zynga Customer Service! Crae H. - Friday, July 30, 2010 8:19 AM CDT go on cymballta its the best meds for nerve pain loook it up on google it will help you son ALOT cymballta user <jummy@hotmail.com> ohio, . usa - Friday, July 30, 2010 4:48 AM CDT try cymballta it is a releaf for all nerv pain i been on it for 5months after 13years of pain no stop its helped jamie aussie, aussie aussie - Friday, July 30, 2010 4:21 AM CDT I am sending my best wishes to all your family, you are ALL fighters and are always so positive. All the very best. Diane Clancy (Dize5) <diane-tom@xtra.co.nz> Hamilton, NZ - Wednesday, June 2, 2010 5:00 AM CDT Have just read your journal and would like to say...what an amazing young man you are and what an amazing family you all are!! Have followed your story on the cancer sux thread. So pleased to hear that surgery all done and you are back home... PS. i know Martin McFarlane and i agree...he`s the best!! Janet Wong <janetmariewong@gmail.com> Yeppoon, QLD Australia - Wednesday, June 2, 2010 4:17 AM CDT I'm so sorry Cohen , good luck on the 12th and talk to you soon And all the best of luck! I'll be thinking of ya! Love Abbey xoxoxoxoxo Abbey Lynch <abbeylynch13@yahoo.co.uk> Cork , Cork Ireland - Wednesday, May 5, 2010 6:49 AM CDT Have just read the journal and feel positively overwhelmed by what you and your son (and family) have dealt with. It is amazing what he has accomplished and what he has overcome so far. Keep fighting and never forget that there are people out there who mightn't know you, but care for you and are astonished at your journey. Ella Hamilton, NZ - Sunday, April 25, 2010 7:17 AM CDT Hiya Cohen!! Another here like taffsgirl from the Cancer Sux thread - except I'm a REAL oldie - damn! the big Six O just passed! I do think of you although we havent spoken & I keep you & your wonderful supportive loving family in my prayers. Huge hugs (can an oldie do that lol??) Lynda Taupo, NZ - Sunday, April 18, 2010 2:15 AM CDT We will update the home page soon, Cohen is waiting for an urgent operation on his spine.. C1 in his spine has a tumour..which needs to be removed in Christchurch...take care and thank you for your positive comments Christine Brown(Mum) <chrisynz2009@xtra.co.nz> Invercargill, Nz - Thursday, April 15, 2010 7:43 PM CDT hey well i know cohen and hes a really awesome guy.and his mum is really nice. i go to the same church as her well all i have to say is mate dont give up and keep fighting you and your family are in my hearts and thoughts each day. xox Erena Mitiau <boyzrhot123@hotmail.com> Invercargill, New Zealand - Thursday, April 15, 2010 6:46 PM CDT Keep on FIGHTING!!!!! NEVER give up. Gary langford jr <glangford2010@gmail.com> Mount Vernon, Ky United States - Thursday, April 15, 2010 6:19 PM CDT Keep your head up son and stay strong and no matter how hopless things may seem now there is always a solution to any situation that you may face now and in the future and always remember that we will be there when the need arises Lee Brown <chrisynz2009@xtra.co.nz> Invercargill, New ZEaland - Monday, January 11, 2010 8:52 AM CST Cohen U Rock!!! Victoria <viki_the_kiwi_chick@hotmail.com> New Zealand - Saturday, November 15, 2008 4:00 AM CST Hey Cohen and Family, So sad to read the latest entry. That just sucks. Heres hoping that you are not feeling too bad. We are thinking of you. Hannah www.caringbridge.org/visit/laurablow Hannah - Monday, November 10, 2008 4:40 PM CST hey cohan babe remmember me yuu call me cheerleader on msn lol kk lov yuu im so sorry k get better miranda <geminicheerleader@hotmail.com> brisbane, OLD australia - Saturday, August 30, 2008 4:08 AM CDT heya cohen.i follow ur story on the tm message brd.another one who spends too much time on it and the housework is suffering haha.i have 3 kids 16(naughty boy)girl 9 and son 6.my kids are off school with a chest infection driving me nuts too i might add.what things do u get up to when ur at home?do u like playstation?well was just a quick hi to you.take care think of u often.xoxoxo mel(taffsgirl) <taffsgirl@hotmail.com> auckland, nz - Wednesday, June 18, 2008 5:24 PM CDT Hey Cohen, how you doing buddy?I have heard about you and this horrible disease that you have.You doing great mate, take it day by day till they get you sorted it all takes time. I know i live with pain every day to, different from yours and im a grandma, but it still sucks eh!. Well wait till you get this scooter He He, now don't you go getting any speeding tickets will ya, Hope things settle down soon and love to your family.. Mary macMillan <Mary-stewart@xtra.co.nz> Invercargill, Southland New Zealand - Wednesday, June 18, 2008 3:58 PM CDT Hi Cohen, We follow your journey on the Trade Me message boards. I really hope today is a better day for you. You are an amazing young man...take care. Love Hannah, Chris, Samuel, Emily, Laura and Alana. www.caringbridge.co.nz/visit/laurablow Hannah Blow <theblows@xtra.co.nz> Auckland, - Wednesday, June 18, 2008 3:53 PM CDT stay strong dude and visit soon Alan Sinclair <kiwilad1@gmail.com> Auckland , - Sunday, March 9, 2008 3:53 AM CDT Hey Cohen and family, I just wanted to say thanks for sharing your story, it is good to read about how strong and brave you are battling with your illness and cool to see you having heaps of fun amongst the doctors visits. Hope things are going well for you at the moment and I look forward to hearing about your next holiday! My little girl is fighting a horrible disease too, feel free to visit her site if you like. www.caringbridge.org/visit/brookeforever Joanne Labedzki <monsterboy1@gmail.com> Whangarei, Northland New Zealand - Wednesday, November 21, 2007 11:15 PM CST www.mintshot.co.nz this is a great site to win prizes . Lee <farrin2006@woosh.co.nz> Invercargill, NZ - Tuesday, November 20, 2007 5:44 AM CST Hi Christine and Cohen...I'm an old neighbour from 34 years ago. Hope you enjoyed your trip to Australia. We've been here 33 years and I still have not been to Queensland, do not like the heat. Cohen you are a very strong willed young man I bet your family are all so proud of you. Take care and God Bless. Rania Love and family Rania Love <rania_love_287@hotmail.com> Werribee, VIC Australia - Thursday, September 13, 2007 11:22 AM CDT Sorry the site is http://www.nfnz.org.nz Thats better see you soon. Bye Tony Tony Gill <mrbrain@xtra.co.nz> - Saturday, September 8, 2007 0:14 AM CDT Hi If you want to check the New Zealand support group out. http://wwwnfnz.org.nz We support people with NF phone Tony 09 436 5211 or 0274 739 543 Tony Gill <mrbrain@xtra.co.nz> - Saturday, September 8, 2007 0:10 AM CDT Hi its Viki. Heard u had a great time in Aussie, thats great! Viki Nelson, South Island New Zealand - Friday, August 24, 2007 0:20 AM CDT hi Cohen. hope thigs are going ok for you ... i have neurofromotosis too - had my lung out when i was seven and then a scolosis operaton when i was 14. i am now 43 - love proving those doctors wrong back then!!! still have som hiccups with nf - have a lump on my foot that has decided to grow a little more. as for those brown marks the one on the other foot is shrinking and the one where the tumor is has been growing but it has been over a long time!! if you want to chat to an old survour of nf drop us a line - lwood@paradise.net.nz anyway all the best and be positive!! Linda Wood <lwood@paradise.net.nz > wellington, new zealand - Monday, May 7, 2007 10:24 PM CDT Hey there Cohen and family!! I hope that you have a break from all the pain and that your trip goes GREAT. We'll be praying for you when you go to Christchurch. Stay strong and you'll be in our prayers. The Porters of NY <mikeporter04@gmail.com> Canisteo, NY USA - Tuesday, February 13, 2007 10:53 AM CST Hi Cohen and family I've been checking you page from time to time, and thinking about you all. Love the photo on your home page. Sorry to learn about the pain you have to put up with. I bet you're all looking forward to going back to Surfers. Good luck in Christchurch this month. Bronwyn Bronwyn Dargaville <bronnie.d@xtra.co.nz> Dunedin, - Monday, February 5, 2007 2:16 AM CST Hi Cohen and family, Pip here from Make a Child Smile. Just came to have a look at your page to see how you are doing. Hope you arent in too much pain at the moment, sounds as though youve been in a lot of pain lately. We have had so many people inspired by you and saying how awesome and strong you are! And I hope youve been enjoying the mail and we have put a big smile on your face! There will be more to come! Thanks for being a part of Make a Child Smile, you are a very special family. Love to all of you. Pip Hickey <info@makeachildsmile.co.nz> - Sunday, February 4, 2007 4:31 PM CST Hi there Cohen, Toni, Jamie and Carl here... We hope you are feeling well honey and that you are making everyone laugh with your joke book.... Wow Feb already Jamie turns 9 this month and I turn Well um lets just say older :) Take care and Tell your family that we say hello :) Toni <tonidock@yahoo.com> Oamaru, - Friday, February 2, 2007 9:53 PM CST What an inspirational family you are and Cohan you must be a real battler!My thoughts are with you all. Amy <amy.thurlow@otago.ac.nz> Dunedin, NZ - Thursday, February 1, 2007 7:05 PM CST morning cohen and chrissy from me in oz - bet you are looking forward to your trip - keep focused on that cohen and may each day be kind to you - hugs and smooches from me to you xx carole phillips <danceswithzola@westnet.com.au> cairns, qld australia - Tuesday, January 9, 2007 6:42 PM CST Hi Cohen and Family! Wishing you all the best...you look like a great young man that lives life to the full and takes any oppotunity that would come your way! I hope you get lots of great oppotunitys to be forfilled, and may your life be filled with everlasting love and eternal happiness...Kia Kaha...Mwah! Kylie (Tm user) - Tuesday, January 2, 2007 9:17 PM CST Sending lots of love Cohen's way xxx Stay strong buddy Jules - TM thegeeza Dunedin, - Tuesday, January 2, 2007 4:06 PM CST Hi Cohen and family ... wow you are all amazing! It is both heartwarming and heartbreaking to read your journal. My thoughts are with you all xxx Dallas aka Dalbyj on TM! <dalbyj5@hotmail.com> Hamilton, New Zealand - Tuesday, January 2, 2007 4:04 PM CST Hi Cohen, My you are a handsome lad...you dont know me but i have been reading your site and wonted to send you some BIG old nana style (((HUGS)) hope ya dont mind carol.....AKA....axel-the-frog TM <crlnoakes@yahoo.co.nz> auckland, nz - Monday, January 1, 2007 11:42 AM CST What a handsome boy! I have a 13 year old son too, and I cannot even imagine what you are going through. Keep strong, and God bless you and your family. Talitha Spick <talitha.spick@xtra.co.nz> Auckland , west New Zealand - Friday, November 17, 2006 4:47 PM CST hey cohen, christine... just thought i would say hi since my email thing wont let me email you so i will just send you all some things from america + a letter to go with it i hope everything goes through well im still praying for you all with love jessica rodgers jessica rodgers <jessi5393@yahoo.com> olive hill, ky united states - Friday, July 7, 2006 8:43 AM CDT hey looks like you had alot of fun. like i always say never give up on what u've got. its suppose to mean never give up onur life or ur self.if u eva get mad at ur self. jessica rodgers <jessi5393@yahoo.com> Olive Hill, KY United States OF AMERICA - Wednesday, September 21, 2005 4:25 PM CDT hey looks like you had alot of fun. like i always say never give up on what u've got. its suppose to mean never give up onur life or ur self.if u eva get mad at ur self. jessica rodgers <jessi5393@yahoo.com> Olive Hill, KY United States OF AMERICA - Wednesday, September 21, 2005 4:20 PM CDT Good to see you had a good time on th Island it is such a cool place. Just viewed your new pictures mums looking good and your a cool looking kid...drop me a mail soon ok dude......... From Uncle Alan Alan Siclair <alan@kiwicity.com> Auckland, New Zealand - Tuesday, September 13, 2005 4:28 AM CDT Hi Christine and Cohen I am pleased Cohen is back at school. But I was really mad when I saw about those bullies and I just want to take those bullies and give them a piece if my mind - there is no place on this earth for people like them. Cohen they are stupid and spineless, don't let them get you down, you are better than they ever will be, just remember what comes around goes around and they'll get what they deserve one day. I hope the school kicks them out. As for no one helping you the other day - that is terrible no one came to help. Anyway best of luck with getting to Australia Bronwyn Dargaville <dargies@xtra.co.nz> Dunedin, - Monday, August 15, 2005 4:35 AM CDT Hi Chrissy and Cohen Another dollwars fan......what a lovely warm family you have, treasure every one and every moment molly111911 Tauranga, New Zealand - Sunday, August 14, 2005 3:43 AM CDT hi cohen! well i wanted to say hi...and stay strong. we love you.:-) signed:from dollwar.com cutie_gurl88 cutie_gurl88 - Wednesday, August 3, 2005 8:31 PM CDT Hello, It's me the 11 year old kid Tegan from dollwar Bye Tegan Canberra, ACT Australai - Wednesday, July 27, 2005 4:57 AM CDT G'Day Cohen I am your mothers cousin, I live in Springfield Missouri, USA. My name is Steve May, keep your chin up mate, when I get Home, your going for a ride on my Harley. I'll keep in touch via regular email. Steve May <kiwimay@yahoo.com> Springfield, MO USA - Thursday, June 23, 2005 10:19 PM CDT Hi Cohen and family Just popped in to your website to see how you are going and to say hello. I hope this new doctor might be able to offer some support. Thinking of you all and Cohen you are such a brave boy. Ronald McDonald house in Christchurch is pretty cool eh, they are such nice people. Love Bronwyn and family (mother to Cameron in Dunedin who also has neurofibromatosis) Bronwyn Dargaville <dargies@xtra.co.nz> Dunedin, New Zealand - Tuesday, June 21, 2005 4:22 AM CDT Geez my typing is bad today but I guess you probably might work out that the previous message meant online friend of Uncle Alan. Take Care xx Lyn UK - Tuesday, June 14, 2005 6:43 AM CDT I am an online from of Cohen's Uncle Alan who sent me a link to his webpage. I can't say any words really that haven't been said already, but what a brave boy, my heart goes out to him and you all. Take Care xxx Lyn Essex, UK - Tuesday, June 14, 2005 6:39 AM CDT hey im joy's son, and from what ive heard your one brave kid with an awesome spirit. keep it up man, these are pretty great things to have. i see you went over to oz recently, wat kind of stuff did you get up to? i went there a while back and its a pretty cool place aye. well look forward to hearing back from u, hav a cool week! alex alex clark <alexmanclark@gmail.com> wanganui, - Tuesday, June 14, 2005 3:36 AM CDT Hi Cohen...how did the MRI go???? It is pretty cold here in Wanganui...I am off to pottery soon and then out to dinner with a friend...I have been wondering if you might enjoy getting your hands on some clay...check out whether there are any potter's societies near you....you can make anything at all from clay....figures, animals, dishes, bowls....balls for the garden...I can keep working even when I am sick....Enjoy the rest of your week....hug to mum, Joy. Joy Clark Wanganui, NZ - Monday, June 13, 2005 11:34 PM CDT I am Cohen uncle and he is a Brave dude am thinking of you and your family at this time. keep it up wee dude Alan Sinclair <alan@kiwicity.com> auckland , - Tuesday, June 7, 2005 7:41 AM CDT great to see your pic, you look really cool darl, loves pomegal lesley ireland <se.lk@clear.net.nz> hunterville, nz - Saturday, May 21, 2005 8:18 PM CDT Dear Brown Family - You sound like a courageous lot! I have a cousin in NY whose son was diagnosed w/NF last year. He's almost 2 now. I get updates now and again - he's had treatment at the clinic in PA. It's a long road for all of them - but their spirits are high. It sounds like your family is keeping their spirits high as well. Good for you! Hold onto the love - and post some family pictures! :) The Wood Family (dj74) <djtrader@xtra.co.nz> Te Puke, New Zealand - Friday, May 20, 2005 3:43 PM CDT still thinking of you although we are at the other side of the world we love you and think you are very brave hope to meet you one day love ian and tracey xxxxxxxxxxxxxx tracey & ian <haze@haze.karoo.co.uk> hull, england - Wednesday, May 18, 2005 2:33 PM CDT Do not be scared to leave your thoughts and messages for Cohen as he doesn,t bite is house trained and is a great kid , send him an e-mail xxxxxxxxxxxx Lee Brown Author <farrin2004@slingshot.co.nz> Invercargill , New Zealand - Wednesday, May 18, 2005 5:54 AM CDT bonniem@xtra.co.nz MommaG <orally@slingshot.co.nz> Thames, - Monday, May 16, 2005 9:48 PM CDT Hi Cohen and family. Great webpage, we love the photos, hope the trip to Christchurch goes well. It would be great if we could all meet up one day. Hugs from another NF family in Dunedin Bronwyyn Dargaville and family <dargies@xtra.co.nz> Dunedin, New Zealand - Monday, May 9, 2005 0:36 AM CDT what up cohen nice to see your pics this is brittany dinners done g2g bye brittany reynolds <jessi5393@yahoo.com> Olive Hill, Ky United States - Sunday, May 8, 2005 6:24 PM CDT hi cohen what r u doin' notin much here this is jessica's friend destiny.will u write me i'm at jessica's address and tell me what u think of her she'll never read it remember jessi5393@yahoo.com thanks,destiny tomlin destiny tomlin <jessi5393@yahoo.com> Morehead, Ky United States - Wednesday, May 4, 2005 5:57 PM CDT hey cohen what r u doin' buddy nothin much here e-mail me Jessica Rodgers <jessi5393@yahoo.com> Olive Hill , Ky United States - Monday, May 2, 2005 4:49 PM CDT Hi Cohen, It was so neat to meet you and your Mum and spend time with you on Jingle Bail. Libby was blown away to see another kid with eyes the same as hers - one blue and the other without any iris. You are a really neat guy. Please try not to let the teasing at school get you down ... just remember there are lots of people who care about you that haven't even met you so just forget about the horrible things that those few ignorant people say and try to stay positive. Take Care, Big Hug to you and pass a hug on to your Mum from me too 'coz she's an amazing lady! Leigh <leebee59@ihug.co.nz> Hamilton, NZ - Sunday, May 1, 2005 4:36 AM CDT Hey. Cool website!!!!! All ther best!!! Cody, csp24 Blenheim, New Zealand - Sunday, May 1, 2005 4:14 AM CDT Hi Cohen, what a brave and lovely young man you are. I saw you and your family on 20/20 a while ago and you really are an awesome family. I hope your arm is better soon and you can ride your new bike. Nicki (5) <craig.nicki@paradise.net.nz> Christchurch, - Sunday, May 1, 2005 4:02 AM CDT Cohen, what an awesome job you have made with the site!!! neat pics as well...will like to see the updates on here... take care and **huggies****** nikki and jake <nikkio@xtra.co.nz> wgtn, nz - Sunday, May 1, 2005 3:51 AM CDT Hi Cohen, What a great web page. The picture of you in Oz is awesome. I send lots of love and hugs to you and your family. Keep smiling, you have a lot of people who care about you. Much love, Anne K (athena2) Anne K Auckland, NZ - Sunday, May 1, 2005 1:25 AM CDT Hey there Cohen, Chrissy and family - just would like to add my meagre support and words of love to your family. Cohen your eyes hold the world and they sparkle ... seems people who live to 70 -80 yr don't have the spark you have - remember hon ... its not how many footprints u leave on the shore, its how deep they are, because no matter what they won't be washed away. Manukarose1 (Amanda) <manukarose@clear.net.nz> Wanganui, WA NZ - Sunday, May 1, 2005 0:13 AM CDT Hi Cohen, hope you had a good time on the goldcoast, bummer about the broken arm, hope you get another chance to go when it's all healed. And yep I think you're a spunk as well, if anyone gives you a hard time, they're probably just jealous. Rachel <muskrat101@hotmail.com> Lower Hutt, - Saturday, April 30, 2005 10:58 PM CDT Hi Cohen, If youw ould like some email buddies, I can ask my girls when they get home if, I ams ure they would love to write to you. Susan (stampa99) Melbourne, Victoria Australia - Saturday, April 30, 2005 10:39 PM CDT To Cohen & Whanau, Thoughts and prayers are with you always, Cohen you hold the world in your hands mate :-) Hold on to it with all your heart and it will open up for you and everything thats in it will be yours. Lots of Love, Hugs and smoochies Puma-nz & family XXXXX Joanie Somerville <mjsomerville@xtra.co.nz> Waitakere, NZ - Saturday, April 30, 2005 10:36 PM CDT Good luck! (I can also vouch that that horrid comment wasn't from AG) cat-mince (Trademe) <catmincenz@xtra.co.nz> Dunedin, Otago New Zealand - Saturday, April 30, 2005 10:09 PM CDT To Chrissy and Cohen,I am devastated by what has happened,that someone could post such a horrible message in here.Please believe me I would never ever do anything like that.I have left a thread on Trademe in General for you as well.Cohen I am heart broken that someone has hurt you so badly and used my name to do it. Atilasgirl. (The Real Atilas girl) - Saturday, April 30, 2005 10:00 PM CDT Hello there young man.First of all,I think you are an insperation to us all.Did you have a wee bit of fun on your travel? I am now going to embarress you a little..My grandaughter thinks you are a spunk..hehehe..Keep you chin up young man,smile and may God be with you and your family..Love from..Margaret (teragram) Margaret Steketee <mstek_7@hotmail.com> Tokoroa, New Zealand - Saturday, April 30, 2005 9:11 PM CDT Hi Cohen! I thought I would come in here and check out your cool website! You're a fine looking boy just remember to not let anything stand in your way or get you down - it's really not worth it in the end is it?? I hope not!! Head up high, big smile and know that you've got and awesome family behind you plus friends all around the country by the looks of it! Jessica Auckland, NZ - Saturday, April 30, 2005 9:08 PM CDT Cohen, people who make nasty comments to others do it for a reason. They are insecure about themselves and the only reason they are nasty to others is to make themselves feel better, rather immature don't you think? Hold your head high and when someone comments you can think to yourself "another insecure human being" and go about your business. Good luck young man and forget about the losers, you'll meet alot of them on your path through life. Carleen (carlie) <carleen.bryce@xtra.co.nz> Tauranga, - Saturday, April 30, 2005 9:02 PM CDT Hey Cohen you are a brave young man.Take absolutely no notice of Atlas girl. I have two teenage sons one 16 and one 15 and they sometimes get zits too! Its all part of growing up and to be expected. We know all about cancer and the struggles you are going through as we have had the same with our son. Keep strong and keep on smiling, you are a dude.!Our love to you and your family. May the road you travel in the future be a safe one. Lyndsey Anselmi <Lyndsey@anselmiconsulting.com> Te Kuiti, 2500 New Zealand - Saturday, April 30, 2005 8:56 PM CDT Hi there Cohen,hope you are having an awesome day today. You are one hell of a brave kid and i think your mum is the best too. My mate whitewolf would like to know if you ride a bmx or mountain bike,as he would like to do a custom airbrush paintjob on it for you as a present. His work hasbeen on XSTV.If you would like this plz contact bonjai of the tm angels and she will help arrange it,or your mum can contact me thru my email. Keep smiling sweet one.XXX Sarah <moonwitch59@xtra.co.nz> Waihi, NZ - Saturday, April 30, 2005 8:52 PM CDT Hey Cohen, Keep ya chin up dude and live life to it's fullest, thinking of you and your family. Kirstie Tabener (ebiiz4planet TM) <kirstie@gin.co.nz> Auckland, New Zealand - Saturday, April 30, 2005 8:51 PM CDT Hey Cohen, Don't take any notice what Altasgirl 9whatever her damm name is) she is jelous of you! I think you ar a spunk!! I can't see any acne, god anyone could see mine from a mile away and I am 24! Don't take to heart what kids and people say about you, you have 100 x more friends and supporters than Alatas girl and the cruel people out there. I hope you had fun with the morning madhouse team, Gold Coast is awesome huh? Hold your head up high, I know name calling and staring can be horrible, but you a tough and its not you with the problem its them! Thanks so much for sharing yourself and your condition through your website- You are a handsome, cool and awesome guy :))) Vanessa (nessa150) Vanessa Main <nessa.main@xtra.co.nz> Hamilton, New Zealand - Saturday, April 30, 2005 8:46 PM CDT Thankyou Cohen for letting us into your life and sharing with us all. Neat photos, you sure are a "cool dude". Awesome mum and dad too. Thoughts are with you and your family. Mary Ward <maryward@clear.net.nz> Invercargill, N.Z. - Saturday, April 30, 2005 3:57 AM CDT Hi Cohen and family, Excellent web page, Our faimly's thoughts are with you all.Keep on smiling. Shenah she3 <galaxies@orcon.net.nz> Auckland, New Zealand - Saturday, April 30, 2005 3:02 AM CDT Dear Cohen, neat site! your a brave young man and we are thinking of you xoxoxo Taylor family. Sharron <darrylsmrs@hotmail.com> timaru, new zealand - Saturday, April 30, 2005 2:49 AM CDT hey cohen.. cool site!! well done! keep up the great work on it. your an awesome kid who has some really awesome parents that obviously love you very much!! im a bit sad that i didnt get to go to aussie looks llike it was an awesome trip!! your a handsome and intelligent young man and i urge you to keep on doing what you love as many of us as adults forget to do that! with all my love and best wishes...(((HUGGIES))) and kisses MUWAH!! xoxoxo belinda ruebe (oprahwinfrey TM) <safiaadams@hotmail.com> auckland, new zealand - Saturday, April 30, 2005 2:39 AM CDT hey cohen.. cool site!! well done! keep up the great work on it. your an awesome kid who has some really awesome parents that obviously love you very much!! im a bit sad that i didnt get to go to aussie looks llike it was an awesome trip!! your a handsome and intelligent young man and i urge you to keep on doing what you love as many of us as adults forget to do that! with all my love and best wishes...(((HUGGIES))) and kisses MUWAH!! xoxoxo belinda ruebe <safiaadams@hotmail.com> auckland, new zealand - Saturday, April 30, 2005 2:38 AM CDT Dear Cohen, I don't know what that Atliasgirl is on about! When I saw your photo I thought you looked damn spunky! Acne is part of been a teen. Hell, I'm 32 and I still get acne! You're a very handsome boy and it sounds like you're very courageous and brave. Keep smiling sunshine. SavageHurricane <savagehurricane@xtra.co.nz> Kaitaia, New Zealand - Saturday, April 30, 2005 2:10 AM CDT Hi Chrissy, Cohen and family, What a great site. It was good to read about you and what you are having to deal with. Your mum and dad are so proud of you and I think you are a great kid who has a great spirit. Kia kaha dude, love to your mum. Tara34. Sharon Tarapipipi <mrstara000@hotmail.com> Nelson, New Zealand - Saturday, April 30, 2005 1:57 AM CDT Hi guys cool photo of you in Australia Cohen. Stay strong Sandra and Alan (dolphinfan) <themasontribe@inspire.net.nz> - Saturday, April 30, 2005 1:39 AM CDT Hello Cohen, You are one strong little man.We send you thoughts of big hugs, fluffy clouds, sunny days, birds singing and crickets chirping.Kia kaha.Cohens mum thanks for sharing his story with us. Sandra and Atila Budak (TM Atilasgirl) <thenikos@ xtra.co.nz> Napier, NZ - Saturday, April 30, 2005 1:21 AM CDT awesome website keep up the good work plus big teddy bear ((((hugs)))) to you and your family brylee aka dizzylizzy <Nikkilee@xtra.co.nz> ngatea, nz - Saturday, April 30, 2005 1:16 AM CDT Thinking of you often. Take time to live life to the fullest. Grab every day and make the most of it as you already are. You are wonderful people in my thinking. You are all in my daily prayers. All the very best to you all. Tex Everett <texeverett@gmail.com> Christchurch, Canterbury New Zealand - Saturday, April 30, 2005 0:45 AM CDT Hi Cohen and family, Great web page, our thoughts are with you all (((hugz))) Vonnie <paccsygirl@freenet.co.nz> Auckland, NZ - Saturday, April 30, 2005 0:20 AM CDT Hi Chrissy, glad you went ahead and made a page will pop in often and check out how you guys are going.Ryan loves his site and checks it 1000 times a day janine godfrey <janinegodfrey@xtra.co.nz> auckland, new zealand - Friday, April 29, 2005 11:41 PM CDT Hi Cohen. Hey would just like to say Hi and let you know that you are in our thoughts. Your web site rocks. Love your photos. Your Mother and Father must be proud of such a handsome young man. All the very best from our family to yours. Sarndra Bryenton <j.s.bryenton@xtra.co.nz> Chirstchurch, New Zealand - Friday, April 29, 2005 11:20 PM CDT Hi Chrissy and Cohen, we have just read your web site, we are so fortunate to have four very healthy grandchildren, we really dont appreciate what you both have to tolerate, but you are obviously a very strong and dedicated mother Chrissy, this comes with our warmest wishes. Linda and Lawrie Avery <mumavery@hotmail.com> Hawera, - Friday, April 29, 2005 11:13 PM CDT Hey there Crissy... I've followed your family since 20/20 but only got to meet you once, you are a very brave and wonderful family who is putting up with things no person should. Please take care and I wish you all the best, from Rach Rachael O'Kane <dante1@kol.co.nz> Invercargill, - Friday, April 29, 2005 10:11 PM CDT cohen, you are a very brave young man. i saw you on tv, with mum. what a cutie you are. stay strong & brave charleen (angelbabe6) <dawngirl@orcon.net.nz> thames, nz - Friday, April 29, 2005 9:37 PM CDT hi there. It's hard not to burst into tears when you read what your poor wee man has had to cope with. Our prayers go out to him and your family. Leon (lbillows) <lbillows.trademe@gmail.com> Invercargill, Southland New Zealand - Friday, April 29, 2005 9:32 PM CDT What a wonderful family you are! My friends Grand child has Neuro, that's the first time I'd heard of it. Good luck to you all. MaryMc (TM member) MaryMc <MaryMcnz@hotmail.com> NZ - Friday, April 29, 2005 9:11 PM CDT I have been lucky to meet chrisy and the family here in Invercargill.Would love to say they are a Very lovely friendly family.Best wishes to you and the family.Hold in there and hope all goes well for the future!Lots of **hugs** from Krystle and the gang :P :P Krystle,Josh and Maddison.(granny_remis family) <granny_remis@yahoo.com> Invercargill, New zealand - Friday, April 29, 2005 8:35 PM CDT My heart goes out to the family , i wish you luck for the future and everything goes well Lisa Shortland <thelma.14@xtra.co.nz> Hamilton, NewZealand - Friday, April 29, 2005 8:12 PM CDT Stay strong it looks like you are a awesome mum doing a great job. Kelly NZ - Friday, April 29, 2005 8:10 PM CDT As a mother of a daughter with Neurofibromatosis & ex wife of a man with severe Neurofibromatosis, I can kind of understand where you guys are. All the best for your future Cohen. Hang in there. I am sure you will with all that love and support from your family. Tina Napier, - Friday, April 29, 2005 8:05 PM CDT hi there. It's hard not to burst into tears when you read what your poor wee man has had to cope with. Our prayers go out to him and your family. carol - Friday, April 29, 2005 7:04 PM CDT Hi Chrissy and Cohen...... Awesome web page keep up the great work.....I would like you to contact me as I think there is another case of what Cohen has right here where I live. Please email me. Chrissy <stormy_weather12@hotmail.com> Palmerston North, NZ - Friday, April 29, 2005 6:50 PM CDT | |||||||||||
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