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Click here to go back to the main page. Saturday, April 11, 2009 4:30 PM CDT HELLO MY ANGEL,
Sunday, November 23, 2008 8:27 PM CST OUR DEAREST ANGEL, A DAY DOESN'T GO BY THAT WE DON'T THINK ABOUT YOU ALWAYS.
Saturday, May 10, 2008 12:59 AM CDT OUR DEAREST ANGEL, YOU ARE ALWAYS IN OUR HEARTS. WE WANTED TO WISH YOU A HAPPY BIRTHDAY.YOU WILL BE 12 YEARS OLD THIS YEAR . A LOVING YOUNG MAN! THERE ISN'T A MINUTE THE GOES BY THAT WE ARE NOT THINKING ABOUT YOU. YOU ARE AN AMAZING SON, LOVING SO LOVING, STRONG, POSITIVE, CARING AND SO SADLY MISSED. WE TALK ABOUT YOU ALWAYS. HOW WE LAUGHED TOGETHER AND CRIED. BUT MOMMY AND DADDY WORLD IS SO EMPTY WITHOUT YOU HERE. YOU ARE OUR HERO. WE ARE SO PROUD OF YOU. I HOPE YOU AND MATT ARE STAYING OUT OF TROUBLE. I KNOW HE WILL KEEP AN EYE ON YOU FOR ME. YOU ARE ALWAYS IN MY THOUGHTS AND PRAYERS EVERY NIGHT! WE LOVE YOU SO VERY MUCH AND MISS YOU SO MUCH!! WE HOPE YOU HAVE A VERY HAPPY BIRTHDAY. ITS HARD TO EVEN BELEIVE ITS WILL BE 2 YEARS OF YOUR PASSING.IT SEEMS LIKE YESTERDAY. BUT JESUS WILL BE TAKING CARE OF YOU AND GRANDAPA. GIVE HIM HUGS FROM US. NANA LOVE AND MISSES YOU TOO!! ALL OUR LOVE SWEETHEART. WE MISS OUR LITTLE HERO!! HUGS AND KISSES MOMMY , DADDY, NANA!!
Tuesday, May 6, 2008 6:26 PM CDT OUR DEAREST ANGEL, YOU ARE ALWAYS IN OUR HEARTS. WE WANTED TO WISH YOU A HAPPY BIRTHDAY.YOU WILL BE 12 YEARS OLD THIS YEAR . A LOVING YOUNG MAN! THERE ISN'T A MINUTE THE GOES BY THAT WE ARE NOT THINKING ABOUT YOU. YOU ARE AN AMAZING SON, LOVING SO LOVING, STRONG, POSITIVE, CARING AND SO SADLY MISSED. WE TALK ABOUT YOU ALWAYS. HOW WE LAUGHED TOGETHER AND CRIED. BUT MOMMY AND DADDY WORLD IS SO EMPTY WITHOUT YOU HERE. YOU ARE OUR HERO. WE ARE SO PROUD OF YOU. I HOPE YOU AND MATT ARE STAYING OUT OF TROUBLE. I KNOW HE WILL KEEP AN EYE ON YOU FOR ME. YOU ARE ALWAYS IN MY THOUGHTS AND PRAYERS EVERY NIGHT! WE LOVE YOU SO VERY MUCH AND MISS YOU SO MUCH!! WE HOPE YOU HAVE A VERY HAPPY BIRTHDAY. ITS HARD TO EVEN BELEIVE ITS WILL BE 2 YEARS OF YOUR PASSING.IT SEEMS LIKE YESTERDAY. BUT JESUS WILL BE TAKING CARE OF YOU AND GRANDAPA. GIVE HIM HUGS FROM US. NANA LOVE AND MISSES YOU TOO!! ALL OUR LOVE SWEETHEART. WE MISS OUR LITTLE HERO!! HUGS AND KISSES MOMMY , DADDY, NANA!! Sunday, August 26, 2007 7:46 PM CDT TO OUR LOVING SON ANDREW. IVE NOW COME TO REALIZE THAT HEAVEN NEEDED A HERO. AND YOU WERE THE GREATEST HERO IN OUR LIVES. WE LOVE AND MISS YOU SO SO MUCH.YOU ARE IN OUR THOUGHTS ALWAYS. I HOPE YOU HEAR MY VOICE ALWAYS WHEN I TALK TO YOU. WE LOVE YOU SWEETHEART. GIVE GRANDPA KALATA A HUG FOR ME TELL HIM I LOVE HIM AND GRAMMA ROLL, STAY BY MY SIDE ALWAYS ANDREW I SO LOST WITHOUT YOU. LOTS OF HUGGS AND KISSES MOMMY,DADDY, NANA!!
Saturday, June 9, 2007 4:49 PM CDT HERE IT IS JUNE, WHERE HAS THE YEAR GONE.IT WAS VERY HARD FOR DAVID AND MYSELF THIS YEAR.I LEFT FOR FLORIDA WITH MY MOM ON ANDREWS BIRTHDAY. WHICH WAS HARD ENOUGH. WE WENT TO MY NEPHEWS GRADUATION. I JUST REMEMBER DIAPERING HIM WHEN HE CAME HOME FROM THE HOSPITAL.AND KNOW HE IS GRADUATING. I SAT THRU THE CEREMONY IN TEARS KNOWING ANDREW WILL NEVER SEE A GRADUATION.I HAD A GOOD CRY THEN CALLED DAVID BECAUSE HE DIDNT COME WITH ME. THEN JOINED THE PARTY.AND HAD A DRINK WITH MY NEPHEW. WE HAD A BLAST ALL WEEK.I THINK LINDA DID THIS TO KEEP MY MIND BUSY.SHE DID AT THAT. I LOVE HER AND MISS HER SO MUCH.MAYBE SHE WILL MOVE BACK HOME SOON.WE HAD THE GRAND KIDS WHICH WAS A BLAST. THEY ARE GETTING SO BIG.MANY THANKS LINDA WE LOVE YA. DAVID IS STILL NOT WORKING, IM GETTING VERY WORRIED.PRAY HE HEARS SOMETHING THIS MONTH.OR WE MAY BE ON THE STREETS SOON.BILLS ARE GETTING PAID BUT VERY BEHIND WHAT CAN I DO? I QUIT MY JOB AT THE DAY CARE. ITS JUST DIDNT WORK OUT FOR ME. MISS MY KIDS .IM LOOKING INTO OTHER DAYCARES NOW. I ENJOYED IT.I FEEL LIKE I CRAWALED INTO A DEEP HOLE NEVER TO COME OUT.IM AM SO DEPRESSED. I WANT TO BE WITH MY SON SO BAD.OUR CHILDREN ARE OUR LIFE.I FEEL SO EMPTY.I THINK ABOUT HIM EVERY MINUTE OF EVERY DAY.TALK TO HIM ALL THE TIME. HE GOING TO TELL ME TO SHUT UP. I DONT HEAR FROM ANYONE WHICH SADENS ME EVEN MORE.BUT I GUESS THATS LIFE. RIGHT.PRAYERS TO MY FEAR FRIEND DIANE, WHO JUST WENT THRU HER SONS ANNIVER OF HIS PASSING.PRAYING FOR YOU MY FRIEND.WHAT ELSE CAN I SAW. Sunday, April 1, 2007 12:34 AM CDT HI EVERYONE! AS EASTER IS CLOSER & CLOSER, ITS GET HARDER FOR ME. I LOVED COLORING EASTER EGGS WITH ANDREW.LIFE WILL NEVER BE THE SAME. HE ALSO LOVED HUNTING FOR EASTER EGGS OUTSIDE THAT HIS AUNT DONNA PUT AROUND THE YARD, FILLED WITH CHANGE. HE LOVED LOOKING FOR HIS EASTER BASKET. I ALSO THINK ABOUT LAST EASTER , HE WAS SO UPSET AND CRIED BACAUSE THE EASTER BUNNY FORGOT SOMETHING HE WANTED.IF ONLY I COULD REMEMEBER WHAT THAT WAS. BUT KNOW MY SWEETHEART YOU WILL HAVE IT IN HAEVEN FOR SURE. MOMMY IS VERY SORRY!!!IT HURTS TO EVEN THINK ABOUT IT. YOUR NEW WORLD CAN GIVE YOU EVERYTHING YOU EVER WANTED AND MORE. AND IM SURE GRAMPA IS TAKING REALLY GOOD CARE OF YOU. I HOPE HES NOT TEACHING YOU BAD THINGS.!!!IT IS SO HARD TO FUNCTION WITHOUT YOU SWEETHEART.BUT MOMMY IS TRYING. ITS NOT EASY,BUT WHO EVER SAID LIFE WAS EASY.I LOVE MY JOB AT THE DAYCARE STEVEN (MY NEPHEW) WAS AT. AND KNOW YOU ARE ALWAYS WITH ME ANDREW, WHEN THE TOYS START GOING AND NO ONE IS AROUND IT, I KNOW ITS YOU HAVING FUN WITH THE TOYS. I AM SO GLAD ITS GETTING WARMER SO JOLMARY AND I CAN WALK DOWN TO THE CEMEMTARY TO VISIT YOU. ALL THE KIDS MISS ANDREW SO SO SO MUCH!! ANDREW HAD THE GIFT OF LIFE IN HIM,AND ENJOYED EVERY MINUTE OF EVERY DAY.THANK YOU GOD FOR ALLOWING ANDREW TO ENJOY EVERYDAY TILL HIS LAST BREATH.MY HEARTS ACHES EVERYTIME I THINK ABOUT YOU , NOT HOLDING YOU ONE LAST TIME OR SAYING GOOD BYE TO YOU.BUT I KNOW IT WAS THE BEST FOR YOU,MY BABY DIDNT HAVE TIME TO BE SCARED.BUT ANDREW YOU WERE ALWAYS BRAVE. YOU ARE MY HERO. AND WE LOVE YOU SO MUCH!! SO MUCH IT HURTS.MOMMY & DADDY KEEP THINKING YOU ARE ON A TRIP AND WILL BE HOME SOON.OH HOW I WISH THAT WAS TRUE.EVERY DAY I ASK GOD WHY ME. WHY ME . WHY TAKE MY ONLY SON. LIKE JESUS GAVE HIS LIFE FOR US, YOU GIVE YOUR LIFE FOR US. I WILL NEVER UNDERSTAND.I HOPE YOU GET EVERYTHING YOU WANT FOR EASTER SWEETY. MOMMY & DADDY LOVE YOU SO MUCH. I WISH I COULD TURN BACK TIME, AND DID THINGS DIFFERENTLY. YOU KNOW I WILL GIVE YOU THE WORLD. HAPPY EASTER AND GOD BLESS DEBORAH DAVID
Sunday, February 25, 2007 11:52 AM CST HEY EVERYBODY. IM STILL HERE. ALTHOUGH I WISH I WOULD FALL ASLEEP AND NEVER WAKE UP. I WANT TO BE WITH MY SWEETHEART. GRIEF IS LIKE A RIVER, WE REALLY NEED TO LET IT FLOW. ITS CLEANSING. YA? SOME DAYS MY RIVER TAKES ME INTO WAVES OF GUILT AND PAIN. MY ROCK NOW IS A ROCK OF ANGER. THERE ARE OTHER SWIMMERS, WHO KNOW HOW I FELL. I NEED LOVING HANDS TO HOLD ON TO ME. WHEN THE WATERS ARE TO SWIFT. WHEN I FEEL IM DROWNING! AND NEED SOMEONE KIND TO LISTEN WHEN I JUST WANT TO DRIFT IN MY RIVER OF TEARS. GRIEF SUCKS,GRIEFS RIVER IS A PROCESS OF RELINQUISHING THE PAST.BY SWIMMING IN HOPES CHANNELS , SOME DAY I MAY REACH THE SHORE AT LAST. WELL WHEN IT RAINS IT FALLS. DAVID GOT LAID OFF, IT ISNT ENOUGH WE ARE BEHIND IN OUR BILLS, NOW THIS.I STARTED WORKING AT A GREAT DAY CARE 5 MINUTES FROM HOME.ITS ONLY PART TIME ABOUT 20 HOURS. I HAD A SMALL PROBLEM, IT WAS BROUGHT TO MY ATTENTION I WAS SEEN SITTING ON THE FLOOR DRINKING MY ICED CAP, WHICH I PICKED UP BEFORE GOING TO WORK. ITS ON THE WAY. I WILL SWEAR ON MY BIBLE THIS IS NOT TRUE.I ALWAYS PUT IT ON THE SINK AND GET A SIP WHEN I COULD.WE CAN HAVE COLD DRINKS NOT HOT. WELL THIS REALLY BOTHERED ME, SO I ASKED THE GIRL WHO BROUGHT IT TO MY ATTENTION THATS TRAINING ME, IF SHE WOULD GIVE ME 5 MINUTES TO TALK TO THE OWNER WHO MENTIONED IT TO HER. SHE SAID THAT IF I WANT TO TALK TO HER I COULD BUT TO REMEMBER SHE IS THE OWNER. IN MY MIND I DIDNT CARE IF SHE WAS THE POPE. YOU KNOW ME I TALK NO TURDS FROM ANY ONE. WHEN I TOLD HER I NEEDED TO TALK TO HER ABOUT SOMETHING THAT WAS BROUGHT TO MY ATTENTION.IT WAS STATED TO ME " I NEVER SAID THAT" AND TOLD HER I SWEAR ON MY SONS GRAVE SHE IS WRONG. THEY HAVE CAMERAS IN EACH ROOM.YOU ARE CONSTANTLY TAKING CARE OF THE KIDS YOU ARE ASSIGNED TO. NEEDLES TO SAY I WAS REALLY PISSED NOW, AND CALL IN THE NEXT MORNING AND TOLD THEM I QUIT. THATS WHEN DAVID CALLED ME TO TELL ME HES LAID OFF. NOW WHAT DO I DO. I TRUELY LOVE WORKING WITH THE KIDS.THE OWNER SAID I WAS A KEEPER I TAKE CARE OF THE KIDS LIKE THEY ARE MY OWN. WELL ALL WEEKEND I WAS DO DOWN AND DEPRESSED. I FAXED THE OWNER A LETTER.I PRAYED AND ASKED GOD WHAT SHOULD DO? BASICLY IM SWALLOWING MY PRIDE, TOLD HER I WAS SORRY FOR MY ACTIONS, AND REALLY LOVE WORKING IN HER FACILITY.ASKED HER IF I COULD COME BACK AND FINISH TRAINING WITH THE GIRL THAT IS TRAINING ME.SO MONDAY MORNING THE OWNER CALLED AND SAID SHE IS TO WILLING TO LET ME COME BACK. BUT STATED I WAS A SENSATIVE PERSON. SENSATIVE MY ASS!! I DID NOTHING WRONG. SO WE WILL SEE HOW IT GOES WHEN I RETURN ON TUESDAY 2/27. IT SHOULD BE INTERESTING. BUT I DO LOVE THE KIDS.SO PLEASE PRAY FOR ME.THAT EVERYTHING GOES SMOOTHLY.SO I WILL LET EVERYONE KNOW SOON. LOVE AND GOD BLESS
Sunday, November 26, 2006 2:26 PM CST MY FIRST CHRISTMAS IN HEAVEN I SEE THE COUNTLESS CHRISTMAS TREES AROUND THE WORLD BELOW,WITH TINY LIGHTS ,LIKE HEAVEN'S STARS, REFLECTING ON THE SNOW.THE SIGHT IS SO SPECTACULAR; PLEASE WIPE WAY THE TEARS,FOR I AM SPENDING CHRISTMAS WITH JESUS CHRIST THIS YEAR.I HEAR THE MANY CHRISTMAS SONGS THAT PEOPLE HOLD SO DEAR BUT THE SOUNDS OF MUSIC CAN'T CAMPARE WITH THE CHRISTMAS CHOIR UP HERE. I HAVE NO WORDS TO TELL YOU,THE JOY THEIR VOICES BRING, FOR IT IS BEYOND DESCRIPTION, TO HEAR THE ANGELS SING. I KNOW HOW MUCH YOU ALL MISS ME. I SEE THE PAIN INSIDE YOUR HEARTS. BUT I AM NOT SO FAR AWAY. WE REALLY AREN'T APART. SO BE HAPPY FOR ME MY DEAR ONES. YOU KNOW I HOLD YOU ALL SO DEAR. AND BE GLAD I'M SPENDING CHRISTMAS WITH JESUS CHRIST THIS YEAR. I SEND YOU EACH A SPECIAL GIFT, FROM MY HEAVENLY HOME ABOVE, I SEND YOU EACH A MEMORY OF MY UNDYING LOVE. AFTER ALL, LOVE IS THE GIFT, MORE PRECIOUS THAN PURE GOLD. IT WAS ALWAYS MOST IMPORTANT IN THE STORIES JESUS TOLD. PLEASE LOVE AND KEEP EACH OTHER, AS MY FATHER SAID TO DO, FOR I CAN'T COUNT THE BLESSING OR LOVE HE HAS FOR EACH OF YOU. SO, HAVE A MERRY CHRISTMAS AND WIPE AWAY THOSE TEARS. REMEMBER ,I'M SPENDING CHRISTMAS WITH JESUS CHRIST THIS YEAR. GOD, HELP US TO GRIEVE WELL. YOU GAVE US ANDREW TO LOVE THESE PAST YEARS. HELP US NOT TO QUICKLY MOVE THROUGH OUR GRIEF. HEAL OUR HEARTS. GIVE US THE STRENGTH TO DO THAT WHICH WE THINK WE CANNOT DO. GIVE US PEACE THIS HOLIDAY SEASON.SURPRISE US WITH YOUR ENABLING GRACE. LORD ITS CHRISTMAS TIME.WE DON'R FEEL LIKE CELEBRATING THIS YEAR.SO COME SPEND THIS DAY WITH US.DAVID & I - BECAUSE WE ARE SO VERY LONELY AND AFRAID. GRANT US WISDOM AND PEACE THIS HOLIDAY SEASON. CREATOR OF ALL, WE THANK YOU FOR THE GIFT OF LIFE YOU GAVE ANDREW.IN OUR CONFUSION & GRIEF HELP US TO REMEMBER THIS SEASON, AND THE JOY ANDREW BROUGHT US. WE LOVE YOU SWEETIE PIE. AMEN AMEN. Saturday, November 11, 2006 4:20 PM CST I WANTED TO SHARE THIS WITH YOU ALL. I LISTEN TO IT EVERYDAY WALKING TO THE CEMETARY TO VISIT ANDREW. THE PROMISE BY TRACY CHAPMAN IF YOU WAIT FOR ME THEN I'LL COME FOR YOU.ALTHOUGH I'VE TRAVELED FAR I ALWAYS HOLD A PLACE FOR YOU IN MY HEART. IF YOU THINK OF ME, IF YOU MISS ME ONCE IN AWHILE THEN I'LL RETURN TO YOU. I'LL RETURN AND FILL THAT SPACE IN YOUR HEART. REMEMBERING YOUR TOUCH YOUR KISS YOUR WARM EMBRACE. I'LL FIND MY WAY BACK TO YOU. IF YOU'LL BE WAITING,IF YOU DREAM OF ME LIKE I DREAM OF YOU, IN A PLACE THATS WARM AND DARK . IN A PLACE WHERE I CAN FEEL THE BEATING OF YOUR HEART . REMEMBERING YOUR TOUCH YOUR KISS YOUR WARM EMBRACE.I'LL FIND MY WAYBACK TO YOU IF YOU'LL BE WAITING I'VE LONGED FOR YOU AND I HAVE DESIRED TO SEE YOUR FACE YOUR SMILE TO BE WITH YOU WHEREVER YOU ARE REMEMBERING YOUR TOUCH YOUR KISS YOUR WARM EMBRACE.I'LL FIND MY WAY BACK TO YOU,PLEASE SAY YOU'LL BE WAITING ,TOGETHER AGAIN. IT WOULD FELL SO GOOD TO BE IN YOUR ARMS WHERE ALL MY JOURNEYS END.IF YOU CAN MAKE A PROMISE,IF ITS ONE THAT YOU CAN KEEP I VOW TO COME FOR YOU IF YOU WAIT FOR ME AND SAY YOU'LL HOLD A PLACE FOR ME IN YOUR HEART. ANDREW SWEETHEART YOU WILL ALWAYS HAVE A SPECIAL PLACE IN MY HEART.I HURT SO BAD FOR YOU, MISS YOU SO BAD.LOST, EMPTY.I HOPE YOU HEAR MY VOICE EVERY TIME I TALK TO YOU.ITS SO HARD, THE PAIN NEVER GOES AWAY. KYLE AND THE KIDS ACROSS THE STREET ARE SO LOST WITH OUT YOU HERE.YOU HAVE A SPECIAL PLACE IN EVERYONE HEART, NO MATTER WHO THEY ARE,FRIENDS FAMILY ETC. I HOPE YOU LIKED YOUR HALLOWEEN BALLOONS NANA AND I BROUGHT YOU. THE I LOVE YOU BALLOON WAS FROM NANA. SHE IS SO LOST WITHOUT YOU TOO, SHE MISSES YOU SO .DEARLY. IT WAS REALLY HARD FOR CONNER THIS YEAR, BECAUSE YOU WERE NOT WITH HIM. AMANDA& ALLISON & STEVEN ALSO.I MISSED YOU SO THAT NIGHT.IT WAS TO HARD TO WALK AROUND WITH EVERYONE AUNT LORI AND THE KIDS. I COULDN'T GO WITH THEM BUT I KNOW IN MY HEART YOU WERE WITH THEM.EVERYONE AT CAMP GOOD DAYS MISSES YOU. I HAVE BEEN HELPING OUT ALITTLE.ITS REALLY HARD BUT I'M TRYING TO STAY STRONG LIKE YOU & I ALWAYS DID.YOU WERE MY MAIN MAN!!! WE LOVE YOU SWEETY SO MUCH DADDY & I ARE SO LOST WITH OUT YOU. TELL GRAMPA MOMMY LOVES HIM TOO. IN HEAVENS ARMS.
Saturday, September 30, 2006 2:44 PM CDT HERE WE ARE , TIME TO SHEAD ALITTLE SUNSHINE AROUND THE WORLD.THANKS 4 VISITING US.MANY PRAYERS TO GABBYS FAMILY WHO RECEIVED HER ANGEL WINGS LAST WEEK.WE LOVE YOU GUYS. WE ARE PRAYING 4 U. ALSO A SPECIAL PRAYERS FOR ANDREWS FRIEND ANDREW.HOPE HE IS DOING WELL WE ARE PRAYING 4 U. NOTHING TO NEW TO TELL. WE ARE STILL TRYING TO WALK THE NORMAL BRICK ROAD OF LIFE. IM AM SO SCARED OF THE HOLIDAYS COMING. IT WILL TRUELY BE A SET BACK.BUT ALL WE CAN DO IS WALK TALL. OH ALMOST 4GOT PRAYERS FOR CHRISTI THOMAS FAMILY SHE LOST HER 4 YEAR BATTLE LAST WEEK.LOVE TO ALL OUR ANGELS AND ALL ARE FIGHTERS. ANDREWS 7 YEARS WAS LONG AND VERY HARD. I STILL TELL MYSELF HE WASNT SUPPOSE TO DIE. WE MADE IT FOR 7 YEARS. HE SHOULD STILL BE WITH US.I FEEL HIM VERY NEAR NOT FAR AT ALL. HE ALWAYS AROUND ME WHEN I NEED HIM THE MOST. ANDREW WILL BE HOLDING MY HAND 4 SURGERY NEXT WEEK AND IN NOVEMBER. HE WILL WATCH OVER ME. I LOVE YOU BABY WITH ALL MY HEART.MOMMY WILL BE FINE. JUST ALITTLE FINE TUNING NEEDED. SO WATCH OVER ME ANGEL BABY I LOVE YOU.!!!!!!TODAY IS DADDYS BIRTHDAY SWEETY. WE BOUGHT AN EXTRA BALLOON TO SEND UP 2 U FOR HIS BIRTHDAY. WATCH 4 IT ANGEL . WE BOTH LOVE U SO VERY MUCH!!!!!!!WE WANT 2 SHARE DADDYS SPECIAL DAY WITH U ALSO. WE HOPE U R HAVING A GREAT TIME IN A GREAT WORLD WHERE WE WILL ALL MEET SOME DAY.PLAYING WITH ALL YOUR LITTLE BUDDIES YOU HAVE MEET ALONG THE WAY.NANA MISSES U SO MUCH ALSO. SHE SENDS HER HUG & KISSES.SHE BLOWS THEM UP 2 U. JOLMARY & I WALK UP TO THE CEMETARY 2 SEE YOU, AND 2 TALK 2 U. I JUST LOVE 2 TALK 2 UR PICTURE INSTEAD OF JUST A STONE. SOME DAYS DAVID & I HAVE A HARD TIME, BUT WE GET THRU IT TOGHETHER.DAVID IS MY HEART AND SOLE NOW. MY STRENGTH MY ROCK MY LOVER MY BESTEST FRIEND.I LOVE U DAVID. I WILL KEEP EVERYONE UPDATED ON MY SURGERYS. LOVE TO ALL GOD BLESS. DEBBIE & DAVID HAPPY BIRTHDAY DADDY!!!!
Monday, August 21, 2006 7:21 AM CDT WANTED TO SAY HELLO TO ALL MY FRIENDS AND FAMILY.THANK U ALL 4 CHECKING IN TO VISIT ME.MY WALK IN LIFE IS SOOOO SOOO DIFFICULT. IM LEARNING TO WALK ALL OVER AGAIN.YESTERDAY I WAS SITTING ON THE KITCKEN FLOOR GOING THRU SOME PAPERS,LAID DOWN ON THE FLOOR AND LOOKED UNDER THE KITCHEN TABLE. FOUND THAT ANDREW WROTE DOWN WHERE EVERYONE SAT AT THE TABLE.I LOST IT. THE NIGHT BEFORE I WAS GOING TO SLEEP AND I ALWAYS SAY GOOD NIGHT SWEETY I LOVE YOU TO ANDREW. I THEN PUT ON THE RADIO ,WHICH I FALL ASLEEP TO, AND HIS SONG PLAYED BY JOSH GROBEN,YOU RAISE ME UP!! I LOST IT. I KNOW OUR JOURNEY WILL BE LONG AND HARD. I MISS ANDREW SOOO SOOO MUCH. BUT KNOW HE WATCHING OVER ME.I STILL HAVE ALOT OF REGRETS. I WISH I HELD HIM IN MY ARMS AFTER HE GOT HIS WINGS.I DIDNT GET THE CHANCE TO SAY GOOD BYE I LOVE YOU BABY.EVERYTHING HAPPENED SO FAST WE DIDNT HAVE TIME TO THINK.I KNOW ANDREW KNEW MOMMY LOVED HIM SO SO MUCH!!IM SO ANGRY THIS DISEASE NEEDS MORE RESEARCH!!!!!OUR BABIES SHOULDNT DIE SO YOUNG AND LEAVE US.MY MOM HAS BEEN AWAY TO VISIT MY SISTER IN CHICAGO.SHE IS MY SHOULDER TO CRY ON, I MISS HER SO MUCH!! ANDREW LOVED HER SO SO MUCH, SHE IS JUST AS LOST AS I AM.ITS HER BIRTHDAY TODAY SHE IS 75 YRS OLD,HAPPY BIRTHDAY MOM LOVE YA.SHE WONT BE HOME TILL SUNDAY.SO I HAVE GODS SHOULDER TO CRY ON FOR THE REST OF THE WEEK.THATS OK, HE LOVES TO HESR FROM ME.I WANT TO THANK DIANE P. THANK U 4 HAVING LUNCH WITH ME TO TALK. SHE LOST HER LITTLE GIRL TO NEUROBLASTOMA TOO. I THINK ABOUT 3 YEARS AGO.SHE IS A WONDERFUL PERSON.I FELT BAD I STARTED TALKING AND THEN STARTED TO CRY , I HAD HER CRYING TOO.LOOKING FORWARD TO LUNCH WITH U AGAIN!! THANK U.I DO SOOO MISS EVERYONE SO MUCH. CERRYL LUKE I LOVE U WE JUST CANT CONNECT. BUT KNOW I CARE ABOUT U SO HOPE U ARE DOING OK. SHE ALSO LOST HER LITTLE BABY. I WANT TO THANK MY FAMILY AT STARPOINT FOR MEETING ME FOR LUNCH I SO ENJOY CING U AND HAVING LUNCH WITH U.THAT ALSO GOES FOR U ROSEANNE, SUE,MY MAMA LOU.HOPE I DIDNT FORGET ANYONE BUT KNOW I LOVE U ALL!!!I WANT TO SAY HELLO TO OUR FRIEND MATT K AND HOPE U R DOING WELL, KEEP FIGHTING!I NEED EVERYONE TO PRAY FOR MY LITTLE FRIEND GABBY AND BIG ANDREW WHO ARE FIGHTING A RELASPE.KEEP FIGHTING WE ARE WITH YOU ALL THE WAY.IN OUR HEARTS AND PRAYERS.SUE DONT FORGET THAT U R IN MY THOUGHTS AND PRAYERS,THERE ISNT A MINUTE THAT GOES BY THAT I DONT THINK ABOUT U.CALL ME ANY TIME WE CAN CRY TOGETHER,IT WILL BE MY THERAPY ALSO LOVE U!EVERYONE REMEMBER TO TELL YOUR KIDS YOU LOVE THEM AND GIVE THEM LOSTS OF HUGS.SAVOIR EVERY MINUTE WITH YOUR CHILDREN.WRITE DOWN ALL YOUR MOMENTS TO BRING A TEAR TO YOUR EYE OR SMILE TO YOUR FACE.WE WILL NEVER FORGET NO MATTER WHAT.I WISH I HAD WRITTEN DOWN MY THOUGHTS ALL ALONG WITH ANDREW AND ALL OUR ENCOUNTERS.LOVE AND GOD BLESS TO ALL, IM RUNNING OUT OF TISSUES SO ITS TIME TO SAY GOOD BYE I LOVE U.
Friday, July 28, 2006 6:50 PM CDT SO WHAT CAN WE TELL YOU? WE RECEIVED THIS IN THE MAIL TODAY . I THOUGHT IT MIGHT BE HELPFUL & WANT TO SHARE , FOR ALL TO BE AWARE OF HOW WE FEEL IN THE LOSS OF OUR SON ANDREW ( OUR ANGEL) WE HAVE EXPERIENCED A LOSS SO SO DEVASTATING TO US. IT WILL TAKE TIME, PERHAPS YEARS, FOR US TO WORK THROUGH THE GRIEF DAVID & I ARE HAVING BACAUSE OF THIS LOSS. WE WILL CRY MORE THAN USUAL FOR SOME TIME. DAVID & I HAVE ENOUGH TEARS TO HELP NIAGARA FALLS. IT WON'T GO DRY. OUR TEARS ARE NOT A SIGN OF WEAKNESS OR BY ANY MEANS LACK OF OUR HOPE OR FAITH. THEY ARE THE SYMBOLS OF THE DEPTH OF OUR LOSS AND THE SIGNS THAT WE ARE RECOVERING.PLEASE BE FORGIVING IF WE SEEM UPSET AT TIMES. WE MAY BECOME ANGRY WITHOUT THERE SEEMING TO BE A REASON FOR IT.OUR EMOTIONS ALL HEIGHTENED BY THE STRESS OF OUR GRIEF.WE NEED YOUR UNDERSTANDING & YOUR PRESENCE MORE THAN ANYTHING ELSE RIGHT NOW. IF YOU DON'T KNOW WHAT TO SAY,JUST CALL US OR LEAVE ME A MESSAGE TO LET US KNOW YOU ALL CARE. PLEASE DON'T WAIT FOR US TO CALL YOU. WE ARE OFTEN TOO TIRED TO EVEN THINK OF REACHING OUT FOR THE HELP WE REALLY NEED.WE ARE NOT GRIEVING TO FEEL SORRY FOR YOU OR CALL YOU. DON'T ALLOW US TO WITHDRAW FROM YOU. WE NEED YOU MORE THAN EVER, DURING THE NEXT YEAR.PRAY FOR US ONLY IF YOUR PRAYER IS NOT AN ORDER FOR US TO MAKE US FEEL BETTER.OUR FAITH IS NOT AN EXCUSE FROM PROCESS OF GRIEF. IF YOU ,BY CHANCE HAD AN EXPERIENCE OF LOSS THAT SEEMS ANYTHING LIKE OURS, PLEASE SHARE IT WITH US. YOU WON'T MAKE US FEEL ANY WORSE.THIS LOSS IS THE WORST THING THAT COULD HAPPEN TO DAVID & I. BUT, WE WILL GET THROUGH IT AND WE WILL LIVE AGAIN.WE WILL NOT ALWAYS FEEL AS WE DO RIGHT NOW. WE WILL AND TRY TO LAUGH AGAIN! THANK-YOU FOR CARING ABOUT US. BUT THIS IS NOT ONLY FOR US BUT FOR ALL THE FAMILIES WHO HAVE LOST A CHILD, AND OR MAY SOME DAY LOSE A CHILD.YOUR CONCERN IS A GIFT WE WILL ALWAYS TREASURE.SO PLEASE DON'T DISAPPEAR LIKE DUST IN THE WIND.BE THERE, SHOW EVERYONE YOU CARE. MAKE A CALL,GIVE A HUG,LEAVE THAT MESSAGE, WHICH ARE FREE.SEND A CARD. WE ALL NEED YOUR COMFORT , YOUR SUPPORT, NOT JUST BEFORE ANDREW PASSED BUT ESPECIALLY NOW! THE WORLD SEEMS TO SCURY LIKE ALITTLE BUNCH OF PACK RATS, NO WHERE TO BE FOUND.SO TO EVERYONE WHOSE HAS LOST SOMEONE LOVE ,AND GOD BLESS TO ALL.WE FEEL YOUR PAIN.LIFE IS A CHALLANGE WITH ONE PERSON IN CONTROL! AS I ALWAYS SAY WE CAN'T WORRY ABOUT IT TILL WE HAVE TO WORRY ABOUT IT!!!BE THERE FOR OTHERS, THEY WOULD BE THERE FOR YOU!THATS WHY WE WERE CREATED BY GOD AND GIVEN A PURPOSE IN LIFE.RESPECT LIFE!! ENJOY LIFE! LOVE LIFE! ALSO WE WANT TO SAY HELLO TO GABBY,AND HOPES SHE IS ENJOYING LIFE RIGHT NOW TO THE FULLLEST!!!!LOVE YOU SWEETY!!(SUE CALL ME ANY TIME)HELLO TO LAWSON,WE MISS YOU.SEE YOU SOON.ALSO HELLO TO KAYLA AND SIS.AND EVERYONE ELSE WE KNOW & LOVE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Sunday, July 16, 2006 8:02 PM CDT HERE WAS ARE TWO MONTHS LATER.WHERE DOES THE TIME FLY TO , I KNOW FOR SURE IM NOT HAVING ANY FUN! IM HAVING A VERY HARD TIME. SOME DAYS GOOD THE NEXT NOT SO GOOD.GRIEF WILL CHANGE YOU,BUT YOU HAVE THE CONTROL.GRIEF IS A PROCESS. RECOVERY IS A CHOICE!SOME DAYS IM IN DENIAL,NUMB,VERY LONELY,GUITLY.WHEN SOMEONE YOU LOVE SO DEEEPLY HAS DIED,WE ARE REMINDED OF THESE HURTS,AND WISH WE COULD MAKE UP FOR THESE PAST MISTAKES.SOME DAYS AS DAVID & I MOVE ON WE EXPERIENCE A SENSE OF RELEASE AND RENEWED ENERGY.JUST LIKE WHEN WE LET OFF ALL THE BALLOONS AT THE CEMETERY.WHEN WE LOST ANDREW WE FELT WE LOST OUR FUTURE.WE CANT CONTROL THE FUTHER.DAVID & I ARE ABLE TO EXPRESS OUR GRIEF OPENLY, BUT EASILY. THERE IS ALWAYS THAT ONE QUESTION IN THOUGHTS AND FEELING OF " IF ONLY " WE ALL HAVE TO UNDERSTAND THAT A " NORMAL" LIFE AS WE KNEW IT WHEN OUR ANDREW WAS ALIVE, HAS DISAPPEARED!! WHAT WAS OUR NORMAL LIFE, DO WE REALLY HAVE ONE AT ALL? BUT NOW THAT A NEW "NORMAL " LIFE WILL TAKE ITS PLACE, AND THE PAIN WILL LESSEN IN TIME, NOT!!! ALL OUR MEMORIES WILL BECOME MORE IMPORTANT TO ALL OF US.AND LIFE REGAINS SOME KIND OF MEANING AND PURPOSE.ALWAYS, ALWAYS REMEMBER YOU WILL NEVER EVER FORGET YOUR CHILD HAS DIED, BUT THERE WILL COME A TIME WHERE YOU WILL ALSO REMEMBER ANDREW OR YOUR CHILD LIVED , REALLY LIVED TO THE BESTEST OF OUR ABILITY. AS REALITY OF THE DEATH REALLY REALLY SINKS IN,WE ASK WHY????? AT THIS POINT ITS NOT REALLY ALL THAT IMPORTANT,THERE ARE NO ANSWERS.WHAT IS IMPORTANT IS THAT IT DID HAPPEN. IT WONT BRING OUR CHILD BACK.AND WE NEED TO ACCEPT WHAT WE CANNOT CONTROL.AND THAT IS LIFE.DAVID AND I ARE COPING WITH OUR GRIEF LIKE WE HAVE A CHOICE,AND SPENDING SOME ALONE TIME TOGETHER.WHICH WE TRUELY, TRUELY NEED.WE HAVE LEARNED TO TALK TOGETHER, CRY TOGETHER , VISIT OUR SON OR EVEN SAY HELLO BABY WE LOVE YOU AS WE ARE DRIVE PAST THE CEMETERY. IT STILL VERY HARD FOR ME TO GO BY MYSELF.I JUST WANT TO TAKE HIM IN MY ARMS AND JUST BRING HIM HOME.ANDREW WILL ALWAYS ALWAYS BE A PART OF MY FAMILY.I TALK TO HIM EVERY DAY.I KNOW HE THERE AND HE LISTENING.TELLING ME I LOVE YOU MOMMY.AND I WOULD SAY GOOD NIGHT SWEETPEA I LOVE YOU TOO!!I STILL REMEMBER EVERY NIGHT WHEN WE WENT TO BED HE WOULD PULL THE COVERS OVER HIS HEAD AND SAID HIS PRAYERS,AND A I LOVE YOU MOMMY.OUR SADNESS IS NOT THE PROCESS OF FORGETTING OUR SON OR CHILD,BUT ALL OF THE REMEMBERING. GOD GAVE US MEMORIES,WE MAY HAVE MEMORIES OF OUR LOVED ONE SUFFERING.OUR MINDS NOW HAVE TO FOCUS ON THE LIFE SHARED WITH OUR SON.NO ONE CAN TAKE AWAY OUR MEMORIES, WE WILL CARRY THEM WITH US TILL THE DAY THAT WE DIE.SOMONE TOLD ME THAT OUR LOVED ONE NEVER REALLY LEAVES US, BECAUSE THEIR SPIRIT ANS PRESENCE CONTINUE THRU OUR DAILY LIVES.THE BEST MEMORIAL WE CAN GIVE OUR LOVED ONES IS TO LIVE OUR LIVES TO THE FULLEST.REMEMBERING IS SUCH A SPECIAL THING.NOW OUR FAMILY'S JOURNEY IS TO TRY TO HEAL AFTER THE DEATH OF OUR SON.GOD CARES WHEN WE ARE SAD.ANDREW JUST WANTED TO LET YOU KNOW WE LOVE YOU SO VERY VERY MUCH, AND MISS YOU SO DEARLY.DADDY ALWAYS GIVES ME BIG HUGS WHEN I NEED THEM THE MOST.DADDY & I ARE DOING OK.I HOPE YOU ARE JUMPING ON THE TRAMPOLINE YOU ALWAYS WANTED MOMMY TO BUY.AND RIDING THE DIRT BIKE YOU ALWAYS WANTED TOO.AND I KNOW GOD IS HUGGING YOU TILL MOMMY & DADDY SEE YOU AGAIN.WE LOVE BABY. ALSO I WANT EVERYONE TO PRAY FOR OUR FRIEND GABBRIELLA WHO ENJOYING EVERY DAY TO THE FULLEST.WE LOVE YOU GABBY!!!LOVE AND GOD BLESS TO ALL.P.S I KNOW YOU ARE WITH YOUR HERO ANDREW!
Sunday, June 11, 2006 6:24 PM CDT THANKS TO EVERYONE CHECKING IN ON US.WE ARE STILL NUMB.I THINK WE ARE STILL IN SHOCK MODE.THIS HOUSE IS SO QUIET,I ALMOST CANT STAND IT AT ALL.I MISS MY BABY SOOOOOO SOOOO MUCH.I FEEL LIKE MY WORLD HAS DIED.ANDREW WAS MY WORLD.BUT MY BABY HAD EVERYTHING HE EVER WANTED AND MORE.HE WALKED THE WALK FOR 7 YEARS, NEVER DID HE GIVE UP.LIKE I ALWAYS TELL EVERYONE,WE HAVE TOO WALK WITH IT ,WE CANT CHANGE IT.MAKE IT THE BEST MOUNTAIN CLIMB OF YOUR LIFE.REMEMBER WE CAN NOT GO BACK. WE LEARN TO ENJOY EVERY SINGLE MINUTE OF EVERY DAY.WE LEARN TO STAY POSITIVE, ALWAYS STRONG,AND LEARN TO WALK WITH OUR HEAD UP HIGH,AND REMEMBER WE CANT WORRY ABOUT IT TILL WE HAVE TO WORRY ABOUT IT!!!PLUS REMEMBER ITS YOUR WAY OR THE HIGHWAY.WE LEARN TO SHOW THEM WHOS BOSS!!!!!!OUR JOURNEY NOW ARE BABY STEPS, ONE FOOT IN FRONT OF THE OTHER. WE CANT DWELL ON WHAT HAPPENED, WE CANT BRING OUR CHILDREN BACK TO US. AND KNOW LIFE WILL GO ON.WE ALL HAVE OUR OWN WAY OF COPING.I FEEL ANDREW WITH ME ALWAYS!! HE SHOWS ME WHEN HE IS AROUND, WEITHER HIS BO BRICE SONG PLAYS,SOME THING SILLY HAPPENING. ANYTHING HE WITH ME.REMEMBER NO BODY CAN EVER TAKE AWAY WHAT IS IN YOUR HEART. EVER!!!!!!!REMEMBER ALL OUR ANGELS ARE SPECIAL ANGELS IN HEAVEN WATCHING DOWN ON US.TALK TO THEM THEY ARE THERE. ALL YOU HAVE TO DO IS BELEIVE!!!!!!!!!
Thursday, May 25, 2006 10:37 PM CDT HERE IT IS A WEEK AFTER ANDREW PASSING. LAST NIGHT DAVID AND I LITE ANDREWS CANDLE FROM THE FUNERAL HOME,AT THE TIME HE PASSED, AND ALSO RELEASED SOME BALLOONS GIVEN FROM CAMP GOOD DAYS AT THE EXACT TIME OF PASSING. IT WAS WONDERFUL.JUST SEEING HIS ANGEL FACE WITH SUCH A SMILE, SOME WHAT HELPS US KNOW HE IS IN THE RIGHT PLACE.HE IS HAVING A CAMP GOOD PARTY WITH ALL HIS FRIENDS. AND GIVING SOME ONE ELSE THE GRAY HAIR.I HAVE ENOUGH! FOR SURE!!! WE FEEL SO EMPTY,BUT I FEEL HIM AND HIS PRESENSE ALWAYS. SO MANY SIGNS. TELLING ME MOMMY IM OK.I WOKE UP WED AM AT 2:11AM,IN A SOUND SLEEP. I KNEW AT THAT POINT ANDREW HAD FOUND HIS GRAMPA.AND DAVIDS MOM & DAD.I KNEW BECAUSE 211 WAS OUR HOUSE NUMBER GROWING UP.HES IN A SAFE PLACE. THE SERVICE WAS SO S WONDERFUL.HE TOUCHED ALOT OF LIVES. I WANT TO THANK EVERYONE FOR STOPING IN TO SAY GOOD BYE. WE WOULD ALSO LIKE TO THANK FROM THE BUTTOMS OF OUR HEARTS,THE STARPOINT SCHOOL DIST FOR ALL THEY HAVE DONE FOR OUR FAMILY THE PAST 4 YEARS.YOU ALL KEPT US STRONG THRU IT ALL. MANY MANY THANKS TO EVERYONE WHO PREPARED FOOD FOR US.I CANT THANK EVERYONE ENOUGH!!! WE LOVE YOU ALL SO MUCH. YOU ALL MAKE THIS WORLD A BETTER PLACE. THANKS BE TO GOD! I HOPE WE CAN REPAY THE COMMUNITY SOME DAY. FOR EVERY THING EVERYONE HAS DONE FOR US.GOD BLESS EVERYONE.MY SISTER IS STAYING 2 WEEKS, FOR ME.I HAVE SO MUCH TO DO , AND DONT KNOW WHERE TO START.BUT SHE WILL CRACK THE WHIP FOR SURE. WE ALSO WANT TO THANK SO SO MUCH, LAWSON FAMILY FOR ALL THEY HAVE DONE FOR US. ALSO THE BENIFIT MONEY WHICH WAS SUPPOSE TO BE THERES BUT THEY DONATED TO ANDREW. AND BETH BRAUN WHO PAINTED THE PICTURE OF LAWSON AND INCLUDED ANDREW IN HER PAINTING WHEN SHE FOUND OUT OF ANDREWS PASSING.AND SAY A PRAYER FOR HER BECAUSE SHE SOME HOW HURT HER NECK. I HOPE SHE IS FEELING BETTER.MANY THANKS TO HER AND BOY FRIEND WHO ORGANIZED A WONDERFUL BENIFIT.SHE IS A GREAT ARTIST! AND IF I REMEMBER CORRECTLY, HER NEXT PAINTING SHE WOULD LIKE TO PAINT IS ANDREW. DAVID & I THOUGHT IT WOULD BE GREAT TO HAVE HER PAINT ANDREWS PICTURE ON HIS 4 WHEELER HE WANTED SO BADLY. THAT HE WAS GIVEN THRU THE HELP OF THE STARPOINT SCHOOL FAMILY.ALSO HIS PICTURE DRIVING LAWSONS FIRE TRUCK IS STILL AVAILABLE I THINK THRU HER WEB PAGE @ www.outdoorreflections.com . WE FEEL SO HONORED. ALSO BEFORE I FORGET WE WANT TO THANK EVERYONE AT THE CHAPEL AT CROSSPOINT FOR ALLOWING US TO HAVE ANDREWS VIEWING AT THE CHURCH.WE FELT SO HONERED,LIKE HE WAS A WAR HERO!! MANY MANY THANK YOUS TO ANY ONE ELSE WE MY HAVE FORGOTTEN. LOVE AND GOD BLESS EVERYONE!
Thursday, May 18, 2006 7:18 PM CDT We want you to know we lost our little angel Andrew last night at 6:55pm- he is now with the Lord. Celebrating his birthday with the lord. We miss him sooo much!!
Sunday, May 14, 2006 2:13 PM CDT HAPPY MOTHERS DAY TO EVERTONE! SADLY ANDREW SEEMS TO BE HAVING MORE PAIN THE LAST 2 DAYS.THIS IS THE WORST THING IN LIFE TO SIT AND WATCH YOUR SON SLOWING SLIPPING AWAY. HIS NURSE WILL BE OUT MONDAY TO SEE HIM.WE WILL BE INCREASING PAIN MEDS ALITTLE TO KEEP HIM COMFORTABLE.I FEEL SO HELPLESS,I WILL BE SO LOST~ I AM AFRAID I WONT MAKE IT THRU ALL THIS, I TRYING TO BE SO VERY VERY STRONG FOR ANDREW.BUT IT HURTS!REALLY BAD! HIS BIRTHDAY IS FRIDAY, IF EVERYONE WOULD SEND HIM A CARD IT WILL MAKE HIS DAY.HIS BENEFIT IS SAT 5-9 . AND IM AFRAID WE MAY NOT HAVE A BIRTHDAY. BUT THINGS ARE PLANED FOR SUNDAY 5/21 AT 1 PM. BUT I REALLY DONT THINK HE WILL EVEN BE UP TO IT. I WILL LET EVERYONE KNOW BY FRIDAY , SAY THE LATEST. ADDRESS: 7067 TONAWANDA CREEK RD. N. LOCKPORT NY 14094. EVERY NIGHT I PRAY TO GOD PLEASE DONT LET HIM SUFFER.TAKE HIM PEACEFULLY,IF HE CHOOSES.MY EYES ARE NIAGARA FALLS I CANT WRITE ANY MORE. JUST PRAY!!!!TRUSTING GOD. LOVE TO ALL Wednesday, May 3, 2006 5:27 PM CDT OK I KNOW ITS BEEN AWHILE , REMEMBER NO NEWS IS GOOD NEWS. ANDREW IS DOING FAIRLY WELL. HE IS A MIRACLE FROM GOD.HE IS AMAZING.HE TRYS SO HARD TO KEEP UP WITH HIS FRIENDS,BUT AS ALWAYS THERE IS NO REST IN HIM.HE ENJOYS SEEING HIS FRIEND KYLE WHO VISITS HIS GRAMMA NEXT DOOR ON WEEKENDS.THANK YOU KYLE FOR BEING HIS GOOD BUDDY.HE IS STARTING TO GET ALITTLE SLEEPY AGAIN, I JUST WONDER IF IT HAS ANYTHING TO DO WITH THE LAST RADIATION TREATMENTS.WE HAD BLOODWORK DONE LAST WEEK. AND HE SEEMS TO BE HOLDING.HEMOGLOBEN WENT UP ALITTLE,PLATLETTS DROPPED ALITTLE.WHO KNOWS? I LAID AWAKE TILL 5 AM TODAY WONDERING WHERE WE ARE GOING WITH THIS.YOUR MIND JUST STARTS THINKING AND WONDERING. THEN I GET TERRIFYED.CRY ALITTLE AND THEN CRY MYSELF TO SLEEP.ITS STILL A EMOTIONAL ROLLER COASTER.I PRAY AND THANK GOD FOR A MIRACLE EVERYDAY.HE HAS GIVEN US JUST ABOUT 2 MONTHS. ITS HARD TO BELEIVE.I GET GRAYER AND THE WORLD STAYS BRIGHTER.HE STILL ISNT EATING MUCH. HE TRYS. BUT IS DRINKING.NOW WE ARE PRAYING FOR A MIRACLE FOR HIS BIRTHDAY SOON. WE ARE HOPING TO HAVE A PARTY MAY 21 FROM 1PM TILL ? ANY ONE WISHING TO STOP OVER YOU ARE ALL MORE THAN WELCOME, MY DOORS ARE ALWAYS OPEN.LETS CELABRATE A MIRACLE FROM GOD TOGETHER. AMEN AMEN.BUT TRUELY I REALLY CANT THINK THAT FAR AHEAD.I AM SO AFRAID TO MAKE ANY PLANS.SCARED TO DEATH.EVERYDAY IS A MIRACLE.REMEMBER I ALWAYS SAY I CANT WORRY ABOUT IT TILL I HAVE TO WORRY ABOUT IT!!!IM STILL A MESS. I SOME TIMES SHUT OUT THE WORLD. IM SORRY I DONT REALLY MEAN TO.GOD IS WALKING WITH ME OR CARRYING ME.I AM TRUSTING GOD TO CONTINUE TO GIVE US MIRACLE!!ALSO PLEASE PRAY FOR ALL OUR DEAR FRIENDS. GABBY HOPE YOU ARE DOING WELL AFTER TRANSPLANT. WE LOVE YOU AND MISS YOU.ANDREW GLAD YOU ARE DOING WELL , DRINK LOTS OF PEACH SPARKLING WATER.SHERRI GOOD LUCK WITH THE NEW JOB,GLAD THE BOYS ARE DOING WELL.SUE , KAYLA,LEA, HOPE YOU HAD A GREAT TIME AT DISNEY. WE MISS YOU & LOVE YOU. AND IF I LEFT ANYONE OUT LOVE AND GOD BLESS EVERY ONE.OH OUR FRIEND SHERI AT CHILDRENS WE ARE DOING OK.THANK FOR LETTING ME KNOW IT WAS TIME TO POST!LOVE YA Tuesday, May 9 2006 Joshua 1:9, BE STRONG AND OF GOOD COURAGE DO NOT BE AFRAID NOR DISMAYED FOR THE LORD YOUR GOD IS WITH YOU WHERE EVER YOU GO.
Thursday, April 20, 2006 11:42 AM CDT HERE WE ARE ANOTHER DAY A MIRACLE,SAT ANDREW WAS OUTSIDE RIDING HIS 4 WHEELER. GIVING ME A STROKE.BUT HAD THE TIME OF HIS LIFE.WED EVENING HE ASKED TO STAY AT THE NEIGHBORS OVERNIGHT WITH HIS FRIEND KYLE. HE WENT, CALLED ME ABOUT 10:30 pm TO SAY GOODNIGHT. I WAS A NERVOUS RECK. HE FINALLY CALLED ME AT 11:30 THIS AM. TO TELL ME HE JUST WOKE UP.NOW HE IS BACK AT KYLES PLAYING PLAY STATION. THANK YOU GOD FOR GIVING US OUR EASTER MIRACLE.HE JUST STARTED TO EAT ALITTLE BIT. NOT MUCH, LIKE A BIRD.BUT ITS BETTER THAN NOTHING AT ALL.WE ARE TAKING LIFE ONE DAY AND ONE BREATH AT A TIME. ANDREW HAS A VERY VERY STRONG WILL TO LIVE. WITH GODS HELP WE CAN DO THIS.THANK SHERRI FOR LETTING US KNOW YOU ARE HOME FROM HOSP. AND BRIAN IS DOING WELL.KAYLA YOU HAVE THE BEST TIME EVER AT DISNEY,HAVE A SAFE TRIP WE LOVE YA.DONT FORGET ANDREWS PICTURE OF HIS PAVING STONE AT GIVE KIDS THE WORLD.ALSO WANT TO THANK OUR NEIGHBOR FOR THE WONDERFUL STUFFED PORK CHOP DINNER WED.AND MANY MANY THANKS TO EVERYONE WHO HAS BROUGHT US DINNERS, AND SUPPLIES.DIANE FROM CAMP GOOD DAYS,JUST EVERYONE FOR THE LOVE AND SUPPORT YOU HAVE GIVEN US AT OUR TIME OF NEED.LOVE AND GOD BLESS!
Friday, April 14, 2006 5:08 PM CDT WE HOPE THAT ALL OF YOU HAVE A TERRIFIC EASTER.WHO HIS OWN SELF (JESUS CHRIST) BORE OUR SINS IN HIS OWN BODY ON THE TREE, THAT WE, BEING DEAD TO SINS,SHOULD LIVE UNTO RIGHTEOUSNESS.BY WHOSE STRIPS YE WERE HEALED . 1PETER 2:24 IM TRYING VERY VERY HARD.ANDREW HAS HAD A FEW GOOD DAYS. SHOCKED US AND WANTED HIS MEDS PUMP TAKING OUT,HE WAS LIKE A FREE BIRD.PEERKY,FUNNY,MY LITTLE MAN. HE EVEN ASKED ME TO TAKE HIM TO HOLLYWOOD VIDEO.HE DID VERY WELL. WE DID TAKE HIS WHEEL CHAIR , HE IS STILL WEAK. HE ALSO WANTED TO GO TO TOPS FOR GATORADE. ITS BEEN AN AMAZING DAY. BUT I AM TRULY VERY SCARED. HE IS TRYING TO EAT ALITTLE, FRENCH BREAD OF COARSE.AND DRINKING.SO ONE BABY STEP AT A TIME.EACH DAY IS TRUELY A MIRACLE AND PRAY TO GOD THEY CONTINUE. I ALSO WANT TO THANK SOME VERY SPECIAL PEOPLE.WHO HAVE BEEN BRINGING OVER DINNER FOR US. EVERYTHING WAS GREAT.I HOPE I CAN REPAY YOU ALL SOME DAY.SO THANKS GO TO CHRISTA,SUE,SHERRI,DONNA.ALSO THANK YOU ALL FOR THE TIM HORTON FAIRY FOR MY ICED CAPACHINO.!! LOVE YA GUYS.THE LOVE THATS IN YOUR HEART YOU GIVE TO OTHERS,RETURNS TO YOU WITH MORE LOVE. Wednesday, April 12, 2006 5:44 PM CDT WE ARE HOME NOW,WE CHOOSE NOT TO DO LAST RADIATION.HE IS DOING WELL SO FAR.SOME PAIN, BUT SEEMS TO BE CONTROLLED VERY WELL.HE HAS HAD A VERY UPLIFTING DAY TODAY,AND I AM PRAYING THAT CONTINUES.I WOULD LOVE TO TAKE HIM TO CHURCH ON SUNDAY EVEN IF IN A WHEEL CHAIR.HE HAS TOUCHED SO SO MANY LIVES.WE ARE LIVING EACH DAY WITH THE GRACE OF GOD.TRUSTING HIM. A WONDERFUL WOMAN I HAVENT HAD THE CHANCE TO MEET YET.IS ORGANIZING A BENEFIT TO RAISE MONEY FOR ANDREW.THE PAINTING SHE IS DOING FEATURES LAWSON SLAUGHENHOUPT, A 5 YEAR OLD GASPORT BOY WHO IS IN REMISSION FROM ALL (ACUTE LYMPHOBLASTIC LUKEMIA)BETHS PAINTINGS PORTRAY CHILDREN AND THERE WISHES. A PORTION OF THE PROCEEDS, ALONG WITH ALL OF THE PROCEEDS FROM THE ACTIONS, ARE DONATED TO AHDREW.THIS PAINTING IS SPECIAL BECAUSE LAWSON AND HIS FAMILY WISH TO HAVE THE MONEY DONATED TO ANDREW. AUCTIONS DONATIONS: CAN BE MAILED TO: ANDREW ROLL BENEFIT C/0 OUTDOOR REFLECTIONS 10 BEWLEY PARKWAY #2 LOCKPORT, NY 14094 :::FINANCIAL DONATIONS CAN BE MADE OUT TO :: ANDREW ROLL'S FUND AND MAIL TO : ANDREWS ROLLS FUND (#1255781) C/O CITIZENS BANK LOCKPORT TOPS 5827 SOUTH TRANSIT ROAD LOCKPORT NY 14094. FOR MORE INFO PLEASE CONTACT BETH VIA EMAIL AT OUTDOORREFLECTIONS@ADELPHIA.NET. THE BEBEFIT WILL BE HELD MAY 20,2006 FROM 5-9 PM. I WILL UPDATE MORE SOON LOVE AND GOD BLESS Monday, April 10, 2006 8:19 PM CDT WELL A WEEKS GONE BY.ANDREW HAD 4 DAYS OF RADIATION TO HIS NECK. WE WENT IN ON WED,HES IS SO WIPED OUT. IF I WAS TOLD MORE ABOUT THE RADIATION AT THAT POINT I WOULDNT HAVE DONE IT.HE STILL SLEEPS ALOT. NECK HAS GONE DOWM SOME.BUT A LITTLE TO SOON TO TELL.WE TALKED ALITTLE TODAY AND HE KNOWS SOMETHING IS WRONG,HE ASK M IF WAS GOING TO DIE.I TOLD HIM IT IS POSSIBLE, BECAUSE WE CANT KEEP THE BAD CELLS AWAY.BUT WE ARE TRYING VERY HARD.HE IS ON A PAIN PATCH EVERY 3 DAYS, PLUS A CONTINUAL PUMP FOR MORE PAIN CONTROL WHEN NEEDED. I MUST STOP NOW, I WILL TRY TO CONTINUE TOMORROW.PLEASE LETS LIFT ANDREW UP IN PRAYER AND ASK GOD TO GIVE HIM THE CHANCE TO LIVE.THE WILL TO EAT AND DRINK AND GET STRONG AGAIN.WE NEED A MIRACLE LORD. PLEASE HEAR OUR PRAYERS.TRUSTING GOD Tuesday, April 4, 2006 11:39 PM CDT ITS 12:45 WED AM. I WANTED TO LET EVERYONE KNOW ANDREW IS BEING ADMITTED TO ROSWELL FOR 5 DAYS OF RADIATION.TO HELP TAKE AWAY HIS DISCOMFORT IN HIS NECK.ADMITTION IS WED AM @ 10 AM.I KNOW ALOT OF YOU WERE PLANNING A VISIT THIS WEEK.BUT I DID NOT GET THE CHANCE TO CONTACT EVERYONE.SO I WILL PRAY EVERYONE SEE THIS POST ASAP. YOU CAN CONTACT ME ON MY CELL FOR NOW @ 946-8474. UNTIL OUR PHONE IS TURNED ON. SO LOOK FOR US IN OUR PENTHOUSE SUITE ON 6 NORTH....NOT MUCH ELSE TO TELL, HE SLEEPS ALOT.HASNT EATEN IN OVER A WEEK.BUT I STILL TRY TO GET THE FLUIDS IN HIM WHEN I CAN.HE ASKS FOR ALOT OF WATER. I WILL POST SOON. THANKS TO EVERYONE FOR THERE VISITS, AND GREAT MEALS. I REALLY NEVER THINK ABOUT EVEN MAKING DINNER THESE DAYS.DAVID IS GOING TO START LOOKING LIKE A TUNA FISH SOON. LOVE AND MANY THANKS TO ALL WE LOVE YOU & GOD BLESS. TRUSTING GOD!!!!!!!! Monday, March 27, 2006 6:35 PM CST SHORT UPDATE,ANDREW IS STILL HOLDING HIS OWN.STILL SLEEPING ALOT, BUT ALERT. DAVID & I MADE ARRANGEMENTS AT THE FUNERAL HOME ON FRIDAY.TODAY WE MADE OR ARRANGEMENTS FOR OUR PLOT FOR ALL OF US.ANDREW WILL BE LAID TO REST WITH ALL OF US DOWN THW STREET AT QUEEN OF HEAVEN CEM. WALKING DISTANCE FOR ME FOR VISITATIONS.YOU NEVER WANT TO THINK ABOUT THESE PLANS BUT WE ARE GLAD THEY ARE DONE WITH. AS I HAVE SAID IN THE PAST, IVE HAD THE CONTROL FOR 7 YEARS, NOW GOD IS IN CONTROL.ANDREW IS COMFORTABLE AND HAS NO PAIN, THATS ALL THAT MATTERS NOW.THE HARDEST PART TO DEAL WITH IS THE EMOTIONAL ROLLERCOASTER.REMEMBER WE CANT CHANGE THINGS BUT LEARN TO WALK WITH THEM, AND CANT WORRY ABOUT IT TILL WE NEED TO WORRY ABOUT IT.MY SISTER SHARON STAYED WITH ME ,SHE DROVE UP WITH THE KIDS. AND I MADE ARRANGEMENTS FOR MY SISTER LINDA FROM FLORIDA COME IN TO SEE ANDREW.LIFE IS TOO SHORT NOT TO STAY CLOSER WITH YOUR FAMILY MEMBERS.I AM SO VERY PROUD ALSO OF MY BROTHER WHO STOPPED OVER LAST WEEK TO SEE ANDREW,I KNOW IT WAS VERY HARD.BUT KNOW IN YOUR HEART ANDREW KNEW HE WAS WITH HIM.WE LOVE YOU UNCLE JOE.ALSO THANKS TO EVERYONE FOR THERE VISITS, ALL MY FAMILY AND WONDERFUL FRIENDS.TRUSTING GOD AND PRAYING FOR A MIRACLE. AMEN AMEN! Saturday, March 18, 2006 4:14 PM CST LIFE IS NEVER LONG ENOUGH,AND WE DONT KNOW WHAT TOMORROW WILL BRING.ANDREW IS STILL SLEEPING MORE. AT THIS POINT NOT EATING MUCH OR DRINKING.HIS COUNTS DROPPED VERY MUCH SINCE MONDAY.HEMOGLOBIN-7.2,PLATLETTS 58 THOUSAND.WE STARTED AN ORAL VP-16 CHEMO TUESDAY,BUT I KNEW IT WAS JUST A BANDAID.HE DIDNT TOLARATE IT WELL. IT IS LIQUID AND TASTES NASTY.AT THIS POINT ITS NOT WORTH IT.HIS NURSE SEES A CHANGE IN HIM,AND WE ARE TAKING IT ONE DAY AT A TIME.NOW OUR ANGEL RESTS IN GODS HANDS NOW.WILL POST LATER Thursday, March 16, 2006 3:43 PM CST THIS WILL NOT BE EASY,WE ARE TRYING TO KEEP ANDREW AS COMFORTABLE AS POSSIBLE.HE IS SLEEPING MOST OF THE DAY, NOT SURE IF IT IS THE EFFECTS OF THE RADIATION,OR THE MONSTER DISEASE CONTROLLING HIS LITTLE BODY.DAMN HIM! I HAVENT TOLD ANDREW WHAT WILL HAPPEN AT THIS POINT, BUT WILL DEAL WITH IT WHEN I NEED TO .AT THIS POINT THERE ARENT ANY OTHER OPTIONS.WE HAVE TRIED THEM ALL.WHERE DO YOU DRAW THE LINE,WHERE IS ENOUGH, ENOUGH? NO ANSWERS.I JUST NEED EVERYONE TO PRAY VERY VERY HARD, TO ASK GOD TO KEEP HIM STRONG FOR HIS DISNEY TRIP HE SO LOOKING FORWARD TO. WE ARE LEAVING 3/29 FOR A WEEK.THIS IS FOR HIM.I WILL KEEP YOU ALL POSTED THE BEST I CAN.ALSO PLEASE PRAY FOR OUR DEAR FRIEND GABRIELLA,GOING INTO TRANSPLANT SOON.WE LOVE YOU GABBY!LOVE TO ALL
Tuesday, March 7, 2006 1:23 PM CST IM LOST , I DONT REMEMBER WHEN I POSTED LAST! FIRST THINGS FIRST. WE WANT TO THANK THE ENTIRE STARPOINT SCHOOL DISTRICT FOR A WONDERFUL,WONDERFUL FUND RAISER FOR ANDREW.THERE LOVE AND SUPPORT IS PRICELESS.THANK YOU TO ALL WHO ORGANIZED THIS EVENT. IT WAS WELL ORGANIZED.YOU ALL DID A GREAT JOB! PLUS THANK-YOU TO ALL THE GIFT GIVING PEOPLE THAT ATTENDED. WE LOVE YOU ALL. WE CANT THANK YOU ALL ENOUGH.LOVE AND GOD BLESS EVERYONE. FEB 26, WE ENDED UP AT ROSWELL FOR A FEVER.ADMITTED BY MIDNIGHT. THE NEXT MORNIBG DR G. TRANFERED US VIA AMBULANCE TO CHILDRENS HOSP. BECAUSE OF PNEOMUNIA (SP)ANDREW HAD BEEN TESTED POSITIVE FOR I THINK WAS CALLED PARA FLU,VIRIAL,FLUID IN HIS LUNGS. RESPERATION WERE VERY HIGH,FOR THE CONCERN OF PUTTING IN A BREATHING TUBE.SO WE WERE TAKEN RIGHT INTO ICU AT CHILDRENS.AFTER BEING THERE FOR 8 HOURS AND STABLE, DUE TO THE FACT THAT ANDREW WAS UP EATING OREO COOKIES.HE WASNT SICK ENOUGH TO STAY, AND WE WERE SENT TO 8TH FLOOR. CULTURES WERE NEGATIVE,BUT WE ARE STILL CONTINUING ANTIBIOTICS FOR 10 DAYS.MONDAY HIS MED A PORT LINE NEEDED TO BE CHANGED SO THE NURSE WAS HERE.A FEW HOURS AFTER SHE LEFT THE LINE WAS PLUGGED, I COULDNT FLUSH AT ALL, AFTER ANTIBIOTICS, SO WE HEADED UP TO ROSWELL.THE LINE NEEDED TO BE PULLED AND A NEW ONE PLACED.AT THAT TIME HE FELT FEVERISH,SO THEY WERE CONCERNED.BUT NO FEVER, BUT FELT STERIODS WERE COVERING UP SOMETHING, AND WANTED TO ADMIT US,ALSO HE HAD A HEADACHE WHICH THEY WERE CONCERNED ABOUT AND WANTED US TO STAY AND WANTED TO INCREASE STERIODS.AT THAT POINT I REFUSED NO ADMISSION OR INCREASE OF STERIODS, WHICH WE ARE TRYING TO WEEN OFF OF. HE WENT FROM 54 # TO 65#.I SPOKE TO HIS DR. WHO STATED THE RESULTS OF THE CT SCAN WE NOT GOOD.IT SHOWS 3 AREAS ON THE LIVER WHICH COULD BE DISEASE OF AN INFECTION.NOTHING MAKE SENSE TO ME ANY MORE!I AM SO SO SCARED!I DONT THINK WE HAVE MANY MORE OBTIONS.DR BRECHER WILL CALL US AFTER HE REVIEWS ALL THE SCANS.TO GO TO TALK TO HIM.MUST GO NOW WILL CONTINUE LATER. TO DIFFICULT! Wednesday, February 8, 2006 4:28 PM CST HI EVERYONE, I DONT REMEMBER WHERE I LEFT OFF.TUESDAY ANDREW WAS COMPLAINING OF WEEKNESS IN HIS LEGS.SO ROSWELL GOT HIM IN TO CHILDRENS THE SAME DAY. WE WERE AT ROSWELL TILL ABOUT 11AM. COME HOME,AND DROVE BACK OUT TO CHILDRENS AT 4 PM. MRI WAS AT 6PM.LITTLE DID I KNOW THAT THE MRI WAS GOING TO BE 2 HOURS LONG.HE WAS STARVING BY THEN. WHEN WE GOT TO THE FLOOR HE HAD A CAN OF POP,8 PACKAGES CRACKERS. BOWL OF FROOT LOOPS NO MILK.BY THE TIME WE LEFT CHILDRENS IT WAS 10:40.AND IT TOOK US TO ABOUT 11:30 TO GET HOME. ROADS WERE BAD.LOTS OF SNOW.WE WERE BACK UP AT 6:30 WED AM,TO BE A ROSWELL FOR RADIATION A 9AM. DUE TO BAD WEATHER IT TOOK US 50 MINS TO GET THERE.AT THIS TIME THEY READ THE MRI DISC I BROUGHT TO THEM.THE AREAS IN THE HEAD ARE RESPONDING TO THE RADITION. AMEN.AMEN!NOW THE AREA ON THE SPINE. ITS NOT GOTTEN BIGGER ,BUT NO SMALLER. REALLY NOT MUCH CHANGE.BECAUSE ANDREW IS LEAVING FOR WISCONSIN ON WED AM. THE DRS. THOUGHT IT WAS A GOOD IDEA TO START RADITION ON HIS SPINE TODAY.SO HE DOESN'T HAVE ANY WEEKNESS IN HIS LEGS ON HIS TRIP.OR ANY PROBLEMS. SO NOW HE HAS 7 DAYS OF RAD. ON SPINE,AND 7 ON HIS HEAD.HE SEEMS TO BE HANDLING IT WELL.HE NOT ONE TO COMPLAIN BUT TO GO WITH THE FLOW.TUES 2/14 WILL BE HIS LAST RAD TREATMENTS FOR NOW. THE DRS WILL RE CHECK HIM WHEN HE COMES HOME TO SEE IF HE NEEDS MORE RADIATION AT THAT TIME. ALL HE CARES ABOUT IS HIS 4 WHEELER AND CAN'T WAIT TO GET HOME TO RIDE IN THE SNOW.NOW INSTEAD OF GOING 8 MILES AN HOUR, MR HEBLER BROUGHT THE SPEED UP TO 20 MILES AN HOUR.ALL THAT MATTERS TO HIM IS HE WANTS TO TAKE MY NEPHEWS LITTLE ONE NATALIE FOR A RIDE.HE SO EXCITED. I DONT THINK THE CT SCAN SCHEDULED FOR FRIDAY,IS NECESSARY BUT WONT KNOW TILL THURSDAY. I AM NOT GIVING UP THIS FIGHT! IM TRYING TO STAY POSITIVE AS I HAVE FOR THE LAST 7 YEARS. SO WE ARE STABLE FOR NOW. AMEN!NEXT FUN THING IS HIS FUND RAISER FEBUARY 24. IT SOUNDS SO WONDERFUL, I CANT WAIT! I AM SO EXCITED. I CAN'T THANK THE SCHOOL ENOUGH FOR EVERYTHING THEY ARE DOING FOR US.AGAIN ANY ONE WANTING TO HELP OF DONATE CAN CONTACT DONNA ROLL @ 688-4870. OR OUR DEAR FRIEND RENEE GIBSON @ 695-6528.ALSO PLEASE SAY A SPECIAL PRAYER FOR A DEAR FRIEND WE MEET IN GEORGIA. HIS NAME IS DALTON AND JUST TURNED 10 TODAY. HAPPY BIRTHDAY WE LOVE YOU.HE HAS BEEN VERY SICK FOR A FEW MONTHS NOW,AND NEEDS EVRYONE TO PLEASE ASK GOD FOR A MIRACLE.AND THE STRENGTH.WE ARE ALL TRUSTING GOD AT THIS POINT,HEAR OUR PRAYERS LORD, HELP ANDREW & DALTON THRU THIS DIFFICULT TIMES. WE ARE INVITED TO ANOTHER HOCKEY GAME IN THE CARLYS SUITE ON SAT. THANK YOU SO MUCH J.P. DUMONT. WITHOUT YOUR HELP IT WOULDNT BE POSSIBLE. ANDREW HAS A GREAT TIME, & MOM & DAD TOO!!!!!!!!!!!!! I WILL UPDATE MORE AT THE END OF WEEK. KEEP THE PRAYERS GOING!!!!!!! LOVE & GOD BLESS EVRYONE. Friday, February 3, 2006 12:17 AM CST HERE WE ARE AGAIN,OUR WORLD HAS CHANGED AGAIN. WE
Thursday, January 26, 2006 6:37 PM CST HERE WE ARE TWO WEEKS AFTER FIRST CHEMO.ANDREW IS DOING FINE.EATING ALL THE TIME DUE TO THE STEROIDS.MY BABY HAS CHIP MONK CHEEKS!HIS NEXT ROUND WILL BE 1/30 FOR 5 DAYS. WE ARE GOING TO DO IT IN OUTPATIENT CLINIC THIS TIME AND SEE HOW HE DOES.I HAD TO TAKE HIM BACK TO THE SURGEON WHO DID THE BIOSPSY.HE HAD WHAT I THOUGHT WAS A PIECE OF THE PACKING GAUGE COMING OUT OF THE HEALED AREA.I WAS WORRIED ABOUT HIM GETTING ANOTHER INFECTION.SO DR CATY LOOKED AT IT TODAY AND SAID IT WAS A STITCH.WHICH I WAS TOLD THERE WEREN'T ANY STITCHES.HE JUST CUT IT OFF, JUST WHAT I WANTED TO DO AND COULD HAVE DONE MYSELF.INSTEAD THE RICH GET RICHER! ALSO WE WOULD LIKE TO THANK SO VERY MUCH FOR ALL THE WONDERFUL PEOPLE AT STARPOINT SCHOOLS.THEY HAD A FUND RAISER LAST WEEK FOR ANDREW.A GOLF PUTT PUTT GAME THEY SET UP AT SCHOOL.IT WAS OVER WHELMING! IT HELPS A GREAT DEAL TO CATCH UP ON MY BILLS ETC.WE CAN'T THANK EVERYONE ENOUGH!!!!WE APPRECIATE ALL THE HELP YOU ARE GIVING TO BRING A SMILE ON ANDREWS FACE.WE LOVE YOU ALL!RIGHT NOW THE SCHOOL IS ORGANIZING ANOTHER EVENT FOR ANDREW FEB 24, I BELEIVE.ANYONE WHO WISHS TO CONTRIBUTE OR HELP IN ANY WAY MAY CONTACT RENEE GIBSON @ 695-6528 OR DONNA ROLL @ 688-4870.SOME OF THE MONEY RAISED WILL BE PUT TO A 4 WHEELERS ANDREWS ALWAYS WANTED.I CAN'T WAIT, IT SOUNDS SO WONDERFUL!!STARPOINT HAS A GREAT STAFF!!! THANK YOU STARPOINT!WORDS CAN'T EXPRESS HOW MUCH WE APPRECIATE ALL YOU ARE DOING!!! ANDREW,& MOM & DAD HAVE TO MEET FOR LUNCH ON SATURDAY FOR HIS TRIP TO WISCONSIN FEB 15-19.HE IS SO SO EXCITED. MEETING EVERYONE ENVOLVED FOR THIS TRIP.I WILL DO EVERYTHING IN MY POWER TO MAKE THIS HAPPEN! JUST KNOWING A NURSE FROM ROSWELL IS GOING THAT ANDREW KNOWS HELPS. ALSO A DOCTOR WILL BE THERE AT ALL TIMES.ALL I CAN SAY IS THESE KIDS DESERVE ALL OF THE BEST.THERE STRENGTH IS AMAZING!ALL I ASK IS , GOD KEEP ALL OF THE KIDS WELL TO ENJOY SUCH A FANTASTIC TRIP!!!!THANK-YOU CIRCLE OF FRIENDS! LOVE & GOD BLESS ALL. I WILL UPDATE NEXT WEEK. TRUSTING GOD, AMEN!! Sunday, January 15, 2006 3:02 PM CST IM SORRY FOR THE LONG DELAY.MAYBE I CAN GET ALL THESE FACTS STRAIGHT.WE WERE AT ROSWELL 1/05 TO HAVE HIS WOUND CLEANED BECAUSE IT LOOKED ALITTLE FUNKY TO THE NURSE.AT THAT POINT WE HADN'T HERD ABOUT RESULTS OF BIOSPY.SO DR. BRECHER CALLED RIGHT AWAY.TO OUR SUPRISE THE BIOSPY CAME BACK HAVING NEUROBLASTOMA CELLS & A STAPH INFECTION.SO IT WAS DECIDED THAT AT THAT POINT ANTIBIOTICS NEEDED TO BE CHANGED.WHAT HE HAD BEEN ON FOR A WEEK WOULD NOT WORK FOR STAPH.SO WE WERE ADMITTED TO ROSWELL AT 6:30 pm.CULTURES WERE DRAWN TO MAKE SURE THE INFECTION WASN"T THRU-OUT HIS BODY , AND ALSO INFECTING HIS MED-I PORT LINE.VANCOMYCIN IS USED THAT HE ALWAYS HAD A REACTION TO, SO I FELT BETTER TO BE ADMITTED.I NEED TO BACK UP ALITTE,THURS. EVENING BEFORE CLINIC HE CAMPLAINED OF PAIN ON LEFT SIDE.SO DR BECHER SAID WE SHOULD GET A CT SCAN THAT WAS SCHEDULED BEFORE BUT ANDREW REFUSED TO DRINK THE CONTRAST SO WE CANCELED. NOW AT THIS POINT ITS 11 AM . HE COULDN'T GET CT TILL 3PM.SO WE STAYED AT THE HOSITAL TO GET IT ALL DONE.NOW IM BACK ON TRACK.SO 1/6 WHEN WE WENT IN FOR ANTIBIOTICS.IT WAS TOLD TO ME THAT THERE IS AN AREA ON HIS SPINE WHICH COULD BE NUEROBLASTOMA. BUT NOT SURE. THEY WANTED TO DO A NEEDED BIOSPY I REFUSED.AT THIS POINT A RADIATION DR CAME TO SPEAK TO US.THAT WE SHOULD DO SPOT RAD.TO HELP WITH THE PAIN TO KILL CELLS FASTER.BUT INFECTIOUS DESEASE WAS IN ON THIS.THEY ARE NOT CERTAIN THAT THIS COULD BE A INFECTION FROM NODE IN NECK POSITIVE FOR STAPH. THIS GET EVEN BETTER!!!!NOW WE GO TO RADITION ON TUES. FOR PREP FOR RADITION IF WE NEED TO START.I JUST TOLD ANDREW WHAT WAS BEING DONE & WHY. NOTHING WILL HURT ITS JUST A CT SCAN TO PIN POINT ORGANS INSIDE.FORGETTING THE RADIOLIST,TOLD US ABOUT A TATOO MARK ON SKIN FOR THE ACTIUAL RAD. THEY NEGLECT TO TELL ANDREW WHAT THEY ARE DOING & WALK HIM THRU THIS MESS.WHAT I HEAR IT REALLY HURTS,A NEEDLE DIPPED IN INK TO MAKE THIS MARK. NOW IM PISSED. HE COMES OUT CRYING! I ASK WHY SOME ONE FORGOT TO REMIND HIM OF THE NEEDLE INK MAKE NEEDED.NOW HE WILL NOT TRUST ME OR ANYONE ELSE.BECAUSE OF THIS ORDEAL.NOW BECAUSE OF THIS ORDEAL HE DOESN'T WANT TO DO RADITION.SO AT THAT POINT IVE HAD ENOUGH.IT WAS TUES 1/10 ANDREW AND I MADE A DICISION FOR EVERYONE, TO START CHEMO TUES.BECAUSE EVERYONE IS PISSING AROUND.I DONT GET IT. THE BIOSPY WAS POSITIVE LETS JUST MOVE ON.IM ABOUT TO BLOW!!!!!!!!!!!!!!!NOW WE HAVE ADULT PATIENTS ON FLOOR THAT SHOULDNT BE THERE. WHICH TAKE 50F YOU CHILDS CARE FOR THESE ADULTS.THE NURSES ARE SO WONDERFUL. THEY ARE WORKING 16 HOUR DAYS EVERY DAY.NOW ONE EVENING ANDREW ASKS FOR PAIN MEDS, SO HIS NURSE GETS UP TO DO , BUT HER ADULT PATIENT NEED BLOOD WORK. WHO HAS THE PRIORTY THE CHILD IN PAIN OR THE PAIN IN THE ASS ADULT WHO NEEDS BLOOD WORK FOR A PROTOCAL? SO WERE FIGURED AS LONG AS WE WERE AT ROSWELL WE WOULD STAY TILL SATURDAY AND COMPLETE HIS ROUNDS OF CHEMO. SO FRIDAY. ID INFECTIOUS DESEASE WANTS AN ECHO OF HIS HEART TO MAKE SURE THERE IS NO INFECTION AROUND THE HEART.HERE COMES THE BS.I REFUSE ECHO, BECAUSE ID WENT THRU ANDREWS NURSE PUTTING HER IN THE MIDDLE,SO MUCH LACK LACK LACK OF COMINNICATION.NOW IM REALLY FIRE UP AND BLOW.THEY NEED TO DECIDE IF THE ANTIBIOTICS NEED TO BE CONTINUED LONGER IF THERE IS AN INFECTION AROUND THE HEART.SO THEY WANTED THIS ECHO,BUT NEVER BROUGHT IT TO MY ATTENTION FIRST. NOW AT THIS POINT I AM THE BIGGEST WITCH WITH A CAPITAL B AT ROSWELL THESE DAYS. I REALLY DONT GIVE A RATS TURD ANYMORE.ITS MY WAY OR YOU ALL HIT THE HIGHWAY!!!!! END OF STORY!NOW WE ARE FINALLY HOME AFTER 8 DAYS OF HELL! ANDREW IS SO OVER WHELMED WITH EVERYTHING.AND WAS SO MAD AT ME BECAUSE HE DIDNT WANT TO GO HOME BECAUSE HE NEEDS TO STAY ACCESSED FOR HIS ANTIBIOTIC I GIVE HIM EVERY 12 HOURS TO COMPLETE HIS 14 DAYS OF ANTIBIOTICS.THIS WEEK OF CHEMO REALLY KNOCKED THE BEANS OUT OF HIM.ONE IS IRONOTIACON IV , AND AN ORAL TEMADAR.I AM REALLY BURNED OUT AT THIS POINT!!BUT WE GET BACK ON OUR HORSE AND GET BACK UP THE MOUNTAIN AGAIN. AS IT STANDS THE NEXY ROUND OF CHEMO COUNTS PERMITTING IS ON 1/30 AS OUT PATIENT AND SEE HOW HE DOES. WE CAN ALWAYS BE ADMITTED PROVIDING THERE IS A ROOM ON PEDS UNIT, AND NOT FILLED WITH PAIN IN THE DUPA ADULTS.IM TRYING TO BE SO STRONG AND POSITIVE FOR ALL, ESP FOR ANDREW. BUT HE IS MY ENERGIZER BATTERY KEEP GOING , GOING ! AMEN THANK -YOU GOD.I WILL POST SOON, RIGHT NOW I NEED A LARGE BOTTLE OF SOMETHING FOR A SINUS HEADACHE THATS CRANKING IN MY HEAD. OH ALSO ANDREW HAS AN APPT. WITH DR CATY ON 1/18 TO CHECK BIOSPY SITE.TRUSTING GOD, AND ASKING HIM TO HELP US ALL GET THRU THIS.HELP ANDREW GET THRU THESE CHEMO TREATMENTS. AND ASKING GOD TO HELP MOM STAY AS STRONG AS SHE HAS BEEN.AND KEEPING HER BLOOD PRESSURE DOWN. GOD PLEASE WALK WITH US.THANK-YOU, AMEN
Saturday, December 31, 2005 3:04 PM CST HAPPY NEW YEARS EVE EVERYONE, WANTED TO GIVE YOU A SHORT UPDATE.LETS SEE , THURSDAY EVENING AROUND 9 PM.ANDREW WAS IN ALOT OF PAIN.WITH THE LUMPS ON HIS NECK.SO AT THAT TIME I GAVE HIM A TYLENOL,BY 9:45 HE IS NOW IN TEARS.SO I GAVE HIM A 15MG CODIENE.AND HAD HIM PUT ON A WARM PACK ON THE NECK.FINALLY AT 10:30 I CALLED ROSWELL TO SEE WHAT I CAN DO TO MAKE HIM CONFORTABLE.THEN BY MIDNIGHT I GAVE HIM ANOTHER 15MGS CODIENE , SO FINALLY BY 1:30 WE WENT TO SLEEP & HE SEEMED TO BE OK.WHEN WE GOT UP FRIDAY AM.AROUND 10 AM.I CALLED DR. CATYS OFFICE TO SEE IF I CAN GET IN SOONER BECAUSE ANDREW WAS IN ALOT OF PAIN.AT THAT TIME I GOT THE OLD ANSWERING MACHINE. SO I THEN CALLED DR. BRECHER TO GIVE HIM AN UPDATE.HE GOT SOME ONE IN DR CATYS OFFICE, AND TOLD US TO GET THERE ASAP.THE OFFICE WAS ROCKING!WE ARRIVED AT 11:45 SAT TILL 1PM BEFORE WE WERE CALLED IN.A DR CAME IN TO ASK QUESTION,AND TO UPDATE DR CATY.THEN WAITED ANOTHER 45 MINS OR MORE FOR DR. CATY.HE FELT A BIOSPY WAS A GOOD IDEA. SO WE STARTED TO SCH. FOR MONDAY. AT THAT POINT THEY ASKED ME IF ANDREW HAD EATEN. HE DIDN'T BECAUSE WE LEFT RIGHT AWAY TO GO TO OFFICE.COULD WE DO BIOSPY NOW, OH MY! LETS GET THIS OVER WITH.SO WE WERE ADDMITTED AND IN THE OR BY 3:30. BIOSPY WAS DONE BY 4:05.THEN TO FILL RXS AT CHILDRENS TO FIND OUT THEY RAN OUT OF THE ANTIBIOTIC WE NEEDED. SO AT THAT POINT IM MAD? SO I HAVE THE NURSE FAX THE SCRIPT TO WALMART TO PICK UP ON THE WAY HOME.NOW WE FINALLY LEAVE CHILDRENS AROUND 7:45.ANDREW WANTED TO GO TO WALMART WITH ME . TO FIND THAT THE SCRIPT WAS NOT FILLED BECAUSE THEY TOLD ME ANDREW WASN"T IN THE SYSTEM.THE PROBLEM WAS THEY COULDN'T READ THE DRS HANDWRITTING, SO WE HAD TO WAIT ANOTHER 25-30 MINS.NOW IM PISSED BUT TO TIRED TO FIGHT PLUS HAD THE WORST HEADACHE.ORDERED A PIZZA AND WAS HOME BY 10PM.THANK-YOU GOD! DR CATY SEEMS TO THINKS ITS AN INFECTION AND NOT THE NEUROBLASTOMA.THANK YOU GOD AMEN! AMEN!THE BIOSPY TAKES 48 HOURS SO POSITIVE RESULTS I WILL KNOW TUESDAY.HE IS ON ANTIBIOTICS AND PAIN MEDS.HE HAS A INCISION ABOUT AN INCH, WHICH HAS TO BE PACKED AND CHANGED DAILY.THIS EVENING OUR FAVORITE NURSE DROVE 45 MINS TO TAKE CARE OF HER BABY.IT WAS SO HARD TO WATCH HER DO WHAT SHE HAD TO DO.BUT IT HAD TO BE DONE.HE WAS HURTING BUT HANDLED IT VERY WELL. HES AMAZING. CRIED & SCREAMED ALITTLE AND THEN WENT TO SEE HE FAVORITE FRIENDS,JOLMARI,BRYAN, JOEL, MARIBEL.THEY BOUNCE BACK QUICK.SO NOW JUST THE WAITING GAME. HE MAY NEED ANTIBIOTICS IV FOR ABOUT 6 WEEKS TO CLEAR THIS HIS NURSE TOLD ME. I THINK WE CAN HANDLE THAT.SO THATS THAT. I WILL POST MORE NEXT WEEK. I NEED MY TRANQULIZER NOW! I WISH.HOPE EVERYONE HAS A GREAT NEW YEARS LOVE & GOD BLESS! WEDNESDAY 12/21/05 HERE WE ARE.ITS BEEN A VERY LONG 3 WEEKS.ANDREW HAD HIS 24 ROUND OF CHEMO 11/28-12/02.AT THAT POINT I SAID TO DR BRECHER WE ARE GETTING TIRED!,ONE MORE TREATMENT WOULDN'T MAKE A DIFFERENCE,IT WORKED OR IT DIDN'T. CAN THIS BE HIS LAST TREATMENT? WE FIGURED WE'D GET IN ONE MORE TREATMENT IN DECEMBER.BE ABLE TO REMOVE HIS MEDIPORT. DR BRECHER MENTIONED ANDREW WAS DUE FOR SCANS.SO WE HAD A MRI OF BRAIN ON 12/06.ON WED 12/07 I GOT A CALL FROM DR. BRECHER TELLING ME HE CONCERNED ABOUT AN AREA AROUND THE LEFT SIDE OF HEAD.AT THIS POINT HE ORDERED A MRI OF REST OF BODY WHICH WAS FRIDAY 12/9.HE WAS ALSO SCHUDULED FOR A MIBG SCAN 12/14-16. WHICH HE GOT AN INJECTION FOR.TODAY ANDREW HAD A BONE MARROW ASPERATION, WITH ALOT OF DISCOMFORT.WHILE HE WAS IN RECOVERY DAVID & I TALKED WITH DR. BRECHER.HERE WE GO , CAN I DO THIS.??THE MRI ON FRIDAY CAME BACK NEGATIVE.BUT STILL THE CONCERN ABOUT THE AREA IN BRAIN.HE HAS A SMALL LUMP ON LEFT SIDE OF NECK,WHICH CONCERNS US.ABOUT THE SIZE OF A QUARTER.DR BRECHER THINKS IT COULD BE THE NEUROBLASTOMA. THE ASPERATION DONE TODAY WILL BE BACK AROUND WED. OF THIS WEEK.IF THAT COMES BACK POSITIVE FOR NEUROBLASTOMA,THEN WE CAN FIGURE IT TO BE THE DISEASE.BUT IF THE ASPERATION COMES BACK NEGATIVE FOR DISEASE,THEN HE WANTS TO DO A BIOPSY ON NODE IN HIS NECK AT CHILDRENS.I STILL CAN'T BELEIVE THIS.IM TRYING SO HARD TO BE STRONG!! WITH GOD WALKING WITH ME. THANK-YOU GOD!!ALL WE CAN DO IS PRAY!!!ASK GOD FOR A MIRACLE! THERE ARE OTHER CHEMO OPTIONS. ONE HES NEVER HAD THAT HAS GOOD RESULTS IN NY SLAON KETTING, IM NOT READY TO TRUCK TO NY AGAIN IF SOME TREATMENT CAN BE DONE AT ROSWELL.BUT THE OPTION IS THERE,THERE ARE SOME CLINICAL TRAILS GOING ON.BUT AT THIS POINT I WILL CROSS THAT BRIDGE WHEN WE GET TO IT.ANDREW KNOWS HE MAY NEED TO CONTINUE MORE CHEMO TREATMENTS.HE HAS LOST 3 WEEKS OF SCHOOL, AND HE GREATLY MISSED BY ALL! WE ARE SAVING TO GET ANDREW A 4 WHEELER HE HAS ASKED FOR , FOR THE PAST 3 YEARS. ANYONE WISHING TO DONATE FOR THIS PLEASE LET ME KNOW. IT WOULD BE GREATLY APPRECIATED.AT THIS POINT I CAN'T THINK OF ANYTHING ELSE TO TELL EVERYONE.ANDREW AND MOM & DAD WANTED TO WISH EVERYONE A GREAT HOLIDAY.HAPPY NEW YEAR!! I WILL POST AN UPDATE WHEN I KNOW MORE ABOUT RESULTS.PLEASE KEEP ANDREW IN YOUR PRAYERS. DEB WEDNESDAY 12/21, IN ADDITION TO MY LAST UPDATE. I SPOKE TO DR.BRECHER TODAY. ANDREWS ASPERATION WAS NEGATIVE & BIOSPY WAS NEGATIVE. SO NOW HE NEEDS TO SEE DR. CATY FOR A POSSIBLE BIOSPY OF LUMP ON NECK. HE HAS A APPT JANUARY 5 WITH DR. CATY.NOW WE CAN ENJOY OUR HOLIDAY. HAVE A GREAT ONE! WILL UP DATE LATER
Sunday, November 27, 2005 11:25 AM CST HOPE EVERYONE HAD A WONDERFUL THANKSGIVING. I DON'T REMEMBER WHEN I POSTED LAST BUT I FIGURED I WAS DUE, OR OVER-DUE. FIRST , I WANT EVERYONE TO SAY A PRAYERS FOR TWO GOOD FRIENDS OF OURS THAT LOST THEIR BATTLE RECENTLY. THIS IS GETTING HARDER & HARDER. MIKE WAS 16 YEARS OLD, AND JOHNATHAN WE MET IN NEW YORK SLOAN KETTERING.TWO WONDERFUL FAMILIES IN NEED OF MANY PRAYERS,ESPECIALLY SO CLOSE TO THE HOLIDAYS.GOD NOW HAS YOU BOTH IN HIS ARMS.TAKEN AWAY YOUR PAIN, AND NOW FREE OF ALL THINGS.WE LOVE YOU GUYS AND WILL TRUELY MISS YOU, BUT ALWAYS IN OUR HEARTS FOREVER! ANDREW IS DOING WELL. WE WILL START ANOTHER ROUND OF CHEMO MONDAY 11/28 COUNTS PERMITTING. THIS WILL PROBABLY BE HIS LAST ROUND! YES!!!!!!!WE ALSO HERD FROM DR. KRAMER IN NY,ABOUT GOING TO NY FOR A STUDY FOR NEUROBLASTOMA.I AM JUST SO UNDECIDED AS TO WHAT TO DO. CONTINUE OR JUST STOP IT ALL AND LET HIM ENJOY LIFE. I KNOW THERE IS A CHANCE TO RELASPSE,ON CHEMO OR THE TREATMENTS IN NY.DARNED IF YOU DO AND DARNED IF YOU DON'T.I NEED TO CONTACT DR KRAMER TO FIND OUT MORE ABOUT THE STUDIES, SO I CAN DECIDE.BUT ALL IS WELL AT THIS TIME.ITS HARD TO BELEIVE CHRISTMAS IS NEAR.MOM NEEDS TO MEND. I FELL IN THE BATH TUB ON FRIDAY AND HURT MY RIGHT RIB.SO PAINFUL.IT HURTS SO BAD TO MOVE.BUT IF MY SON CAN GO THRU WHAT HE DOES, I GUESS I CAN HANDLE THIS.MY MOTHER CLAIMS IT WILL TAKE ABOUT 6 WEEKS TO HEAL.NO TIME!!LIFE GOES ON. GETTING READY FOR CHRISTMAS.ANDREW WILL BE GOING TO WISCONSIN IN FEBURARY FOR 5 DAYS.THRU ROSWELL.HE IS SO EXCITED, SNOW MOBILING,SLEDDING, SKING,ETC.BUT MOM IS JELOUS I CAN'T GO. THESE KIDS DESERVE TO HAVE FUN. WILL POST SOON WITH MORE TO UPDATE.LOVE AND GOD BLESS.TRUSTING GOD!
Sunday, October 16, 2005 2:30 PM CDT HELLO EVERYONE. ITS THAT TIME AGAIN.I'VE LOST TRACK OF TIME. I AM SO SORRY.ANDREW IS DOING WELL.AMEN!ROUND 22 OF CHEMO STARTS MONDAY 10/17. WITH HOPEFULLY JUST 2 MORE AND WE SHOULD BE DONE DONE DONE! IT WILL BE TWO FULL YEARS OF CHEMO THIS JANUARY.TIME FLIES WHEN WE ARE HAVING FUN! YOU ALL WILL THINK I AM CRAZY,BUT GOING TO ROSWELL IS FUN! EVERYONE IS SOOOO WONDERFUL!! ITS OUR SECOND FAMILY.AND THE GIRLS FROM ESSENTIAL CARE TOO!!! CAN'T FORGET THOSE LOSERS!! LLLLLLLLL!!!!!! JUST KIDDING, I LOVE THEM ALL. ANDREW IS ENJOYING SCHOOL.HE HAS SWIMMING THIS YEAR AND HE LOVES IT. THANK-GOD FOR HIS MEDI-PORT! HERE IT IS ALMOST THE END OF OCTOBER. WHERE DOES IT FLY TO.BUT AGAIN NO NEWS IS GOOD NEWS PRAISE GOD!!IM NOT SURE ABOUT GOING TO NY SLOAN KETTING YET.ONE STEP AT A TIME. ANDREW IS GOING TO KUEUKA LAKE FOR HALLOWEEN WEEKEND.HE CAN'T WAIT. THEY DO ALOT OF GREAT THINGS FOR THE KIDS.NOT MUCH ELSE IS NEW. IM FINALLY GETTING BACK ON TRACK.I HAVE A NEW DOCTOR, AND SLOWLY BE TAKING OFF SOME RXS. ITS GETTING BETTER. NOW TAKEN OFF MEDS FOR TYPE 2 DIABETES. AFTER DRIVING MY SELF TO THE ER LAST WEEK FOR LOW BLOOD SUGAR! IM WATCHING WHAT I EAT AND LOSING THE WEIGHT I NEED TO.ALSO TAKING 1/2 THE DOSE OF BLOOD PRESSURE MED , WHICH IS GREAT. .( LIFE MAY NOT BE THE PARTY WE HOPED FOR, BUT WHILE WE'RE HERE WE SHOULD DANCE!!!!!!!!!!!!!!!)REMEMBER THAT I LOVE IT! PRAYERS FOR ALL OUR FIGHTERS!! STAY STRONG!
Wednesday, August 31, 2005 7:27 PM CDT HI ALL,A MONTH HAS GONE BY.BUT WE ARE DOING WELL! ANDREW JUST FINISHED HIS 20TH ROUND OF CHEMO LAST WEEK. WE HAD TO GO TO THE HOSPITAL TODAY FOR A BLOOD TRANSFUSION.WE HAVE HAD SUCH A BUSY SUMMER I CANT BELEIVE THE KIDS WILL BE GOING BACK TO SCHOOL ON TUESDAY.AMAZING,WHERE DID THE TIME FLY???? NEXT IT WILL BE CHRISTMAS. WE WERE IN THE HOSPITAL THE WEEK OF AUG 14 -19 FOR FEVER. BUT CULTURES WERE NEG.HE WAS ON 2 ANTIBIOTICS,FEVERS UP TO 104.7*.SCAREY.THEY DID A THROAT CULTURE WHICH SHOWED A FUNGAL INFECTION.ON DOSE OF DYFLUCON AND FEVER FINALLY BROKE AT 4 AM ON THURSDAY. AND FINALLY DISCHARGED ON FRIDAY. AMEN!THEN BACK IN ON MONDAY 8/22-8/26 FOR A 5 DAY ROUND OF CHEMO.BUT THE GREAT NEWS WAS THAT HIS SCANS WERE CLEAR!!!!!THANK YOU GOD AMEN!I HAVE A LOVE FOR GOD!! OUR LITTLE FRIEND IAN IS DOING WELL AFTER 2ND SURGERY FOR NEUROBLASTOMA.NEWLY DIANOSED.PLUS THEY ARE IN THE PROCESS OF MOVING TOO.AND JUST GOT MARRIED. AMAZING!! PLUS THERE WILL BE A BENIFIT SOON FOR IAN. GOD PLEASE KEEP THEM STRONG THRU ALL THIS.KEEP THEM IN YOUR THOUGHTS AND PRAYERS.ALSO OUR PRAYERS GO TO A FRIEND FIGHTING HIS DISEASE WITH A SECOND OPINION TO CONTINUE HIS FIGHT!!KEEP FIGHTING MIKE C.ALSO PLEASE KEEP THE FAMILY OF A LITTLE BOY JAMIE WHO LOST HIS BATTLE WITH NUEROBLASTOMA AND WENT TO BE WITH GOD TODAY,WEB PAGE www.caringbridge.org/europe/beebo
Sunday, July 31, 2005 8:01 PM CDT Hi everyone, Where does the time go? It seems like just yesterday I posted.Andrew is doing well.Just finished his 19 round of chemo last week.Dr Brecher wants to continue till January 2006.Andrew finally went to camp this year for the first time at Keuka Lake with Camp Good Days. He had a BLAST! Mommy was worried he would want to come home.NOT!! He called me first thing Monday to tell me hes alright.Having fun.David and myself ( plus NaNa) took a trip to the camp for a visit. What A place! Fantastic!! We had lunch with him & then took a tour of the camp.It was really nice! I hated to come home myself. If any one is able to donate to Camp Good Days please Do!!!!! They do alot for the kids!! Monday he has day camp with Camp Good Days till Friday.Events like Darian Lake,Chucke cheese,picnic in the park etc. He is having so much fun! Its hard to believe that school will be starting soon. Counts permitting he will have another round of chemo the week of Aug 15.He handles it so well.Also please say a prayers for two new friends who the children are newly dianosed with neuroblastoma. One liitle one is a year old having surgery Mon 8/1 at childrens,by the same great surgeon Andrew had.Keep him in your prayers , surgery will take approx. 8 hours.I am going to visit Mom at the hospital tomorrow. Love and prayers to all. Saturday, June 25, 2005 7:13 PM CDT I Know, I know, Its been a while. But again, no news is good news. Well Andrew just finished round 18 of chemo today. Doing well! Only now hes learned he can not eat two pieces of pizza with blue cheese before chemo. Still doing chemo till we hear from Ny. Plus he also needs to be HAMA negative before we can go for the new vaccine. We just FEd-Xed a blood sample to Ny Thursday. He did very good in school, headed for 3rd grade in Sept.We have been so busy lately, no time to think! Tye dye party at Roswell, Concert at Dunn Tire Park (jo Dee Macina) birthday parties, Fathers Day.Last day of school. A week of chemo. Now Im hopeing to be bored this week. NOT! What is next? OPPS maybe 4th of July? Time is flying! All in all we are all doing very well! Thank you God! Church every Sunday Am at 9am. Andrew loves it.Its wonderful! Please keep all fighting any disease in your prayers. Pray for our friend at Roswell Mike C. Who is going thru a bone marrow transplant this week.Stay strong! Love and God Bless! Saturday, May 28, 2005 2:19 PM CDT Hi everyone, Where does the time go???? Andrew just finished his 17th round of chemo today. Dr Brecher finally talked to Dr Kramer in Ny.She will talk to the neuroblastoma board and get back to Dr Brecher. He needs to be hama negitive any way but still positive after 17 rounds of chemo.So we will do a blood draw after counts go back up and Fed-X to Ny. And Take it from there.He is doing well.His 9th birthday party was last saturday. What a GREAT GREAT DAY! Thank-You GOD! 20 kids & 16 adults??fun! We want to thank everyone so much for making his birthdy a special one.His money is still burning a hole in his pocket! He is using it WISELY!!!It was great to see special friends!!Family & Kids! More news when I know more. For now Love to all Deb P.s Forgot to mention scans were both NORMAL!! Thank-GOd!!
Saturday, May 28, 2005 2:19 PM CDT Hi everyone, Where does the time go???? Andrew just finished his 17th round of chemo today. Dr Brecher finally talked to Dr Kramer in Ny.She will talk to the neuroblastoma board and get back to Dr Brecher. He needs to be hama negitive any way but still positive after 17 rounds of chemo.So we will do a blood draw after counts go back up and Fed-X to Ny. And Take it from there.He is doing well.His 9th birthday party was last saturday. What a GREAT GREAT DAY! Thank-You GOD! 20 kids & 16 adults??fun! We want to thank everyone so much for making his birthdy a special one.His money is still burning a hole in his pocket! He is using it WISELY!!!It was great to see special friends!!Family & Kids! More news when I know more. For now Love to all Deb Saturday, May 7, 2005 5:40 PM CDT Here it is ,a month gone buy again! I can't beleive it.Andrew completed round 16 this week. Doing well! Thank- God! Dr Brecher is trying to contact Ny to see whats going on,& to figure out our next move. Andrew will have his MRI & CT this week.Please lets all Pray Hard!! for good results!! I can't even beleive that he almost done with school.Im trying to convince him to go to camp this summer with Camp Good Days.He'd have a blast!I think he is still afraid to leave Mommy.I'm praying he'd go. I could us a break! We also maybe going to Camp Sunshine ,too. In Maine.It sounds like great fun.I am also trying to get ready for his 9th birthday party 5/21. It seems like just yesterday he was dianoised, and its been 5 years.I can't beleive it I must be having some fun???!!! As I think about it,9 years old. I cannot change what has happened,and can'think about tomorrow because its not here yet. God can't make a mountain I can't climb. You learn to LIVE each day like its the LAST! Your child is your reason to LIVE!! Cherish what you have, because you can not GO BACK!!God Bless ! Update later in the week.
Sunday, April 10, 2005 10:26 AM CDT I can not beleive a month has gone by.I guess I'm OVER DUE! Andrew is doing well.He will have his 15 round of chemo this week. Still waiting to hear from Ny on vaccine. Should be hearing some time this month, I hope. Me I'm getting tired.Back and forth to hospital since Jan 2004.But Andrew just plugs along. Its our life.If it wasn't for everyone at Roswell & Essential Care,I would be in the loony bin by now. Summer is near and we can enjoy life alittle more. I have to start planning for his birthday party next month. I can't believe he will be 9 years old. I guess I'm getting old. Well no news is good news. Thank-you God! We will update when I know more. Love & God Bless. Sunday, March 6, 2005 10:57 AM CST Here we are again, wondering what is going on these days. Again Thank-you God No news is good news!Andrew is doing well! Last week he scared me to death, all my blood left my body.He layed down at 9pm. And told me he had a pain in the back of his head.Then ran to bathroom because he felt sick. Got sick ,layed back down to tell me he couldn't breath.Sp. He just had blood drawn the day before & his hemo was 8.5. So I called Dawn one of his nurses to redraw his blood on Wed. Maybe his counts dropped.And needed a transfusion.Blood were drawn at 7am. But he still had to go to school,because he didn;t want to miss his field trip.He seemed FINE!!! No problems.Thank-God! His counts were up Hemo-8.8 platlets up to 60.Terry called me from Roswell,to tell me Dr Brecher finally herd from Dr kramer to get the next plan of action.She feels that we should continue with what we are doing.Seeing Andrew is doing so well.So We will be doing round 14 in a week or so counts permiting.Also she feels he would be a good canadate (sp) for a new vaccine coming out next month.For Neuroblastoma,still a phase one trail.I don't know much about it yet but will talk to Dr brecher when we start another round of chemo in a week or so.So we may be heading to Ny next month. I will let everyone know when I know more.Hes doing well, still hates to do homework,and gives me a hard time about it.Also gives me a hard time about putting in his hearing aids in school.He claims he doesn't need them,that he can hear just fine.where is the super glue when you need it??Thanks for checking in,Prayers for Joshua, Dalton,Jay,Morgan,ETc. All are friends winning and still fighting. Thank-you God Amen!
Monday, February 14, 2005 4:55 PM CST I know everyone is looking for this. First things first! Please pray for our little friend Joshua who went to be with Jesus This morning.Hes in a cloud looking down saying no more pain, no more needles..!!! He was a special little boy!! Andrew and I meet them in Ny. Wonderful Family.The road has been rough for awhile, now seems alittle harder now! Dear God give them the strengh to get thru this.Watch over them God. Keep them strong! In our thoughts and prayers.Christine , Joshua is looking down on you telling the world what wonderful parents he had thru this all.Thru thick or thin you were there! You all did a great job! God Bless you All!!******* Andrew is doing good. We will be starting round 13 of chemo 2/15 for 5 days. Im not sure what the plan of action is yet. Dr Brecher was on vacation last week . So we will squeeze in another round! I will get some more info tomorrow and let everyone know where we go from here! Please pray for all other children fighting this monster!! Pray for our Friend Dalton , that his Ct tomorrow gives them good news!! Dear God Please watch over us all! AMen!! Amen! Thursday, January 13, 2005 7:28 PM CST Hi Everyone, Happy New Year To All! Lets PRAY! AMEN! AMEN! Well Andrew had a Ct scan & mri on 12/27. Dr Brecher states everything is stable!! Praise God! He was suppose to have a MIBG scan last week but was canceled. He had them this week. So i have to wait for the results. I know God is watching over him and everything will be alright. Starting Monday 1/17 he will start another round of chemo for 5 days. I am not sure what Dr Brechers plan of action at this point but will probably know more next week when we go to clinic. Hes up to 53 pounds now. Constantly eating,The other day I think he had 12 pieces of his favorite rye bread toast. Where does he put it? Its a good sign he eating!! Thank GOD! So he is doing very well. We had a wonderful holiday!!! Lots of wonderful gifts. Its hard to beleive its over. And I'm now one year GRAYER! I still haven't broken down yet and bought a hair color for my hair. I guess I feel I have earned them still! Andrew tells me I need to color my hair! Maybe some day! I will add it to my heart attack list! YEH!! Go Mama Go Mama! Please say a prayer for the Palmateer family who lost there son at the age of 20 12/30/04 from cancer of course.What else?? Sandy you will truely be missed. In our thoughts and prayers always.We Love you! Prayers to everyone fighting any disease. Andrew asked me the other day if he was going to die? My heart stopped! I didn't know what to say at that point. I was speechless ! All that would come out of my mouth at that time was, I'm not sure. I told him that not all cancers will make you die. And Dr. Brecher is trying to keep all the bad cells away. He seems to be ok with that at this point.Thank-God! Prayers for our friend Johanna in hoping she doing well. We Love & Miss you!! Must go now , updates to follow soon. Love to all!
Thursday, December 9, 2004 4:31 PM CST Here we are again,Andrew is doing his 11th round of chemo this week. Doing well! Amen! Amen! Dr Brecher is scheduling scans for the end of this month.After this round. Im not sure what our plan of action is at this time. I think its based on scan results. I just pray to God everything is still clear. Nothing new to talk about. Lets just pray! Christmas just 2 weeks away I don't beleive it. Its seems like it was just January and Andrew had a relaspe, and now its December already. Where did the year go? Did I have FUN and ENJOY it ? NOT!!!!!!!!!!! Aunt Sharon is going to be here for Christmas. Andrew can't wait to see his cousin Alex. I can't beleive my neice Jamie is in her senior year in high school this year. I remember powdering her little fanny just yesterday. Does that mean Im getting OLD! I know for a fact that the gray is in. Oh Well! Thats life. We all need to pray for a special friend who went to Camp Fire this summer also a patient at Roswell. With us. Her name is Joanna. She didn't receive good news about her disease.God please watch over her ,keep her safe. Let her have a very peaceful journey to your world. If you choose to take her.Pray for Mom, Dad, brother & sister. Help them to be strong. Carry them thru.We all Love you very much! Amen! Pray for all the other children fighting this monster. Or any monster! God Bless everyone And Happy Holidays!
Tuesday, November 2, 2004 4:09 PM CST Ok everyone,I guess its that time again.Again no news is good news... Andrew started his 10th round of chemo this week. Time flies when we are having fun, Am I ????? Today Tuesday he had to go for a CT of sinuses due to another sinus infection. And a chest X-Ray. Chest is clear. Chronic sinusitus. Now on a antibiotic for 20 days. But doing well. Some days he is under the weather from Chemo. But springs back like a hot potato when meds get in him. We will probably be doing scans some time this month. He has a tutor this week at home to keep him caught up with school work.Doing Great. Had a great time Halloween with his cousins. Got lots of candy.. Oh Boy! Fuel for the soul! Aunt Linda is coming for a visit with baby Natalie. He can't wait to see her! Shes my nephues little girl. Shes now 3 months old. Andrew is so excited! I told him he had to feed her and change her." Mom I can feed her but no DIAPERS!!" Thats your job! We don't see them often enough, but we do have fun when they come for a visit. Andrews picture is on the cover of Roswells holiday cards @ www.paintboxproject.com.So if you want to order, order on line! His picture is there too! They do alot with him Its great! Lets keep everyone in our prayers.And keep in touch! Love ya
Friday, October 8, 2004 7:22 PM CDT Here it is a month has passed! Where did it go?? Well, Andrew just finished his 9th round of chemo today.And doing very well. Praise God! On the other hand Mom went to the ER on Sunday evening.I had pain in my left side, in my back.You sit in ER for 3hours with only a urine sample done, to tell me I have the start of a kidney infection.Plus dealing with a sinus infection on top of that. So Daddy took a few days off so Mommy can rest and took Andrew for his Chemo this week. Thank-you Daddy. I love you! So things are going very well..Andrew eats constantly, I can't keep up.He woke up the other morning at 5am wanting a slice of pizza. I think NOT!!!! He got rye bread toast instead. It worked! Time to recoupe for next round of chemo , about 4 weeks. But doing well! Love and prayers to all!
Friday, September 3, 2004 3:17 PM CDT Hi all, I guess times flies when we are having fun. Some one please tell me if Im having any FUN!!!!!!!!!Well I talked to Dr. Brecher last week about results of MIBG scan. As my hair turns grayer! There was some concern about the area of the left ear canal that caused the initial bells palsy. And some concern about an area in his abdomen. So Monday 8/31 we were scheduled for a CT of the chest, abdomen,pelvis.Tuesday 9/1 we had a MRI of the head.Today Dr Brecher hadn't got all the results back.But did finally call me with the bestest NEWS!!Amen ! Amen! The MRI was still the same as the one in June.Also the CT scans showed clear.And Bone marrows show no signs of tumor.Thank_you GOD! AMEN! AMEN! PRAISE GOD!!! No uptake in either area! So we will continue with the same chemo as hes been on.So Tuesday he will start school & Wednesday we will start round 8 of a 5 days of chemo. Now that we know all the facts I can let everyone know. I felt sure everything was OK! He is still eating like a horse! Gaining weight, Now 50 pounds! Doing great no complaints. One day at a time . Now I will get my hair frosted again to cover up the gray.Pray Andrew continues to due well, and all the others fighting a monster.All our love and prayers to all.
Tuesday, August 24, 2004 10:12 AM CDT Its time for a short but sweet update.Andrew finished his 7th round of chemo. Last week we were at Roswell Tues-Fri. for a MIBG scan. I don't have any results yet but will let ya know. Friday Dr Brecher is doing Andrew bone marrow asp. He is up to 50 pounds. Amen! Its all that toast in the middle of the night,or pizza! He is doing great. He can't wait for school to start. Not soon enough for me! We went shopping for clothes and sneakers. Now we just need school supplies. We have had a wonderful summer. But it went by to FAST!!!!!!!!!!!Befor you know we will be shopping for Christmas! All our love. Update soon! Wednesday, August 4, 2004 4:16 PM CDT Well, Here we are again. No news is GOOD NEWS AMEN! AMEN! Andrew is doing great. This week his going to Camp Good Days.Hes having a great time. Monday Build a Bear,Tuesday Chuck E Cheese & Tops cooking school, where they made there own pizza.Wed they took a trip to Strong Museum,nothing tires him out. Next week will be his 7th round of treatment.Mon-Fri 5 days.The next week will be scans at Roswell.He has A MIBG scan for 4 days. Please pray everything is clear.Way to much going on this month,no time to think or even get in trouble. He is really injoying his summer! All my love and prayers to all. Will update soon! Friday, July 9, 2004 6:24 PM CDT Ok, Don't have a stroke. Yes Its me again! I know this is long over due. Well we had our trip with Camp Fire Fly at Callaway Gardens. It was fantastic!!! Beautiful, breathtaking,WONDERFUL!!! WE meet some great families. We sure do miss everyone. We had two activities each day. The Moms got pampered for the day at a wonderful hair salon, where we had our hair done, a manicure, a pedicure, a facial, our makeup done. It was a blast. Something you see on Oprah, but don't expect to happen to you. We had so much FUN!!!! Then we had a wonderful dinner that evening for MOms & Dads. Kirk & Chealsea watched all the kids. They are two wonderful people. A gift from God! Words can't express the wonderful week we all had.. I have 8 rolls of film to be picked up. Plus Kirk & Chealsea are sending each family a photo album. We had a two bedroom villa, 4 double beds , two full baths.So cool. We all had a 2004 Lexus suv to drive for the week. Brand new , donated for all of us. But the sad part we all had to give the cars back. Darn! It was Paradise!! It was the best week of our lives. Thank-you to everyone who made it possible.Especially the staff at Roswell Hosp. It was priceless. Thank you to the wonderful Camp Fire Fly Staff for giving us all many many memories! We Love you And Miss You All!! God Bless you all! Andrew had to start his 6th round of chemo on Tues 7/6 for 5 days. But the good news is his scans done befor we left for Georgia. Came back CLEAR!! Thank-you God Amen Amen! Dr Brecher wants to get in as many rounds of chemo before the end of the year. Hoping to keep him in remission longer! He is scheduled for a bone marrow asperation next month and a MIBG scan Aug 10. To see all is still good. He is doing great. Im trying to keep him busy this summer. Hopefully when our trip pictures are back I can Download some on Andrews photo page. All our Love and prayers to all. Talk to you soon.
Saturday, May 29, 2004 10:09 AM CDT Its that time again,No news is good news.Andrew is doing well. We finished our 5th round of chemo last weekend. We should be doing scans this week or next. He had a wonderful,wonderful birthday party. Camp Good Days sent him a balloon bouquet to Roswell to surprise him. It was great. A birthday to remember. He also went fishing with Camp Good Days on Tuesday,he had a blast. Thank you everyone who made his 8th birthday a special one ,Friends & Family. We Love you All! Also Andrew was chosen thru Roswell.To take an all expense trip to Camp Fire Fly in Georgia. We are so so excited!!! Its all run by Kirk Cameron And his wife Chelsie Noble. Hes from the show growing pains. Our on villa, boating, swiming, camp fires,etc. You name it we will do it! WE haven't done anything together sinse his wish trip back in April 2001. I can't wait. Its from June 26 - July 2,I will keep you updated when I know more. Take care updates soon. Love to all!
Tuesday, May 11, 2004 7:06 PM CDT Hi everyone, Hope everyone had a wonderful Mothers Day. I did. Andrew brought me rye bread toast and kool-aid in bed.He made my day.How kool is that!!!Hes is doing good. We went to clinic on Thursday to start his next round of chemo,to find out his anc dropped to 670. It should be at atleast 1000 to start chemo. So the nurses came out Sunday Am to draw blood to see if we can start Monday. When I called the hospital for his counts, they were the same. ANC is his white cells that fight infection. So now we try again Thurs for blood work again. Hopefully his counts came up to start chemo. We will delay it till Monday because Im having his Birthday party Sunday. Pray its a wonderful day.Aunt Donna rented a bounce house again the kids have a blast. It is so much fun to have everyone together.Food, drinks,cake and lots of fun!! I love it.We all have a great time. Well I will let you all know how things go next week. Love and prayers to all.
Tuesday, May 4, 2004 5:52 PM CDT Hi everyone, I guess its time for that update. Scans were suppose to be last week,but Dr. Brecher said we do scans after the forth round of chemo.But thought we only had three rounds so far. So now we start the 5th round of chemo Thursday,for 5 days.And some time in the next two weeks scans. Andrew is doing fine. Wild as always. Hes all excited about his birthday party Sunday May 16. Ill admit I go over board for his party. But its alot of fun.And I enjoy doing it. Well this is short and sweet,I will update soon. Love and prayers to alll!! Saturday, April 24, 2004 9:01 AM CDT Well I will try this again. I just updated and lost everything somehow. This update is for Aunt Sharon. Who is going thru journal withdrawl.Like I said before no news is good news. Well Andrew ended up with sinus problems again and was put back on antibiotics. Which he had very loose stools so I sent in a stool sample, which came back positive for a c-dif infection. He was put on flagyl for 10 days which cleared things up. Now the sinus problem is back because we stop the med. So hes back on antibiotics again. He just finished his 4th round of chemo the last week he was off from school. It worked out great.No school lost! Now I left a message for Dr Brecher about scans again. If I remember correctly he wanted scans done after the 4th round. He has done very well. I will update when I know more. Pray for Joradn Lukes family. Jordan became an angel April 14 in his Daddys arms. WE will miss you buddy . We love you. I still need to check on all our other friends. Joshua,Hope all is well. Morgans scans all clear Thank-GOd! Taylor & Carolyn hope you are doing well.We miss you. Lindsay we pray for you that you are not having alot of pain & you will be able to start new treatment soon. All our Love & Prayers to all!! Saturday, April 24, 2004 8:59 AM CDT Thursday, April 1, 2004 11:37 AM CST Hi all, Here it is Thurs and no news is good news.Andrew is doing well. Counts still holding. We finished third round of chemo Friday.He was all excited about his Easter egg hunt today at school. Nothing holds them down. I think we will do another round of chemo and do scans again.He will have blood drawn tomorrow. To see if he needs a blood trans. Now I need everyone to pray for little Jordan. He left the world three time this weekend and returned. Hes amazing . Mom says hes sleeping more,Lets just pray its a peaceful journey to heaven! Its so hard to put into words how you feel. You want to do more. Be There. Give all hugs. Be there support. Because you are fighting the same monster, every child is fighting. But we are support ,in prayer, On web-site contact. In thoughts. Jordan honey ,Andrew & I truely love you. And Mom & Dad. You will always be in our hearts forever!! Even Andew!! Just like you always called him in the hospital. MOm & Dad stay strong and God will lead you! Prayers to all. Wednesday, March 24, 2004 4:25 PM CST Ya know. Before Cancer we Lived. Now we live STRONG. It still makes me sick to hear about a child struggling to live, fighting the neuroblastoma battle and loosing.Please pray for Andrews friend Jordan. Who is fighting & not winning. Pray that his final moments will be peaceful. Just like heaven above. Jordan we LOve You!!!Cheryl & Don we love to too! Stay strong. Now as I try to hold back the tears I will try to update you on Andrew. So far this is day 3 of chemo and doing well. Alittle sicky feeling this Am. But when Zofan & decadron kick in look out.The car still pulls into McDonalds drive thru for a double hamberger and fries. I don't know how these kids do it. But they do. We got home just in time for his tutor and to put on the kettle for tea. Now the school calls to worn of chicken pox , what next. Next week is the last week before a two week break for Easter. FUN!! Why do these kids need two weeks ? To make the Moms grayer? But remember each day to the fullest.Amen!! Also we wants to say Good- Luck to Brian who will be going to transplant soon.Prayers be with you! Prayers to all.
Saturday, March 20, 2004 2:16 PM CST Here it is Saturday and time to update.All his tests this week look good, he is responding to the chemo.So we will start round 3 on Monday for 5days.Dr Brecher is talking to Sloan Kettering to see what the plan is after chemo. Hes doing great , other than another sinus infection.What else is new.Pray for our friend Jordan,Fighting life to the fullest.Amen!Pray for all the children fighting this disease. This is short and sweet, I will update during the week.Love to all. Sunday, March 14, 2004 7:17 PM CST I think everyone is wondering whats going on in the Roll Household.Well no news is good news.We have scans scheduled for this week. Monday is his ct scan and Thursday is his MRI.I pray to God everything is responding to the Chemo. We will continue the next round,round 3 next week ,counts permiting.He is doing fine. His hair is growing back in alittle already.He is such a good sport. Nothing bothers him.He has the man upstairs watching over him every minute of every day.Amen!Not much to tell.Aunt Linda was here from Florida for a week. We had A blast.I truely miss her.WE went to see The Passions Of The Christ. Very intense movie.I cried thru the whole movie.Took the kids bowling yesterday. Andrew had a great time. He going to miss his cousin Jason.I pierced his ear.I can't beleive he wanted it done.But I did it. Hey Jason ,next a Tatoo!You and Me!Ya! It was such a fun week! I never laughed so much in my life.We are going to miss everyone very much!!We Love you all! Please say a prayer for our friend Jordan.Taking a licking and keeps on ticking.Way to go Joradn . We love you so much.Pray for all the children fighting any monster.Love and prayers to all. Sunday, March 14, 2004 7:17 PM CST I think everyone is wondering whats going on in the Roll Household.Well no news is good news.We have scans scheduled for this week. Monday is his ct scan and Thursday is his MRI.I pray to God everything is responding to the Chemo. We will continue the next round,round 3 next week ,counts permiting.He is doing fine. His hair is growing back in alittle already.He is such a good sport. Nothing bothers him.He has the man upstairs watching over him every minute of every day.Amen!Not much to tell.Aunt Linda was here from Florida for a week. We had A blast.I truely miss her.WE went to see The Passions Of The Christ. Very intense movie.I cried thru the whole movie.Took the kids bowling yesterday. Andrew had a great time. He going to miss his cousin Jason.I pierced his ear.I can't beleive he wanted it done.But I did it. Hey Jason ,next a Tatoo!You and Me!Ya! It was such a fun week! I never laughed so much in my life.We are going to miss everyone very much!!We Love you all! Please say a prayer for our friend Jordan.Taking a licking and keeps on ticking.Way to go Joradn . We love you so much.Pray for all the children fighting any monster.Love and prayers to all. Tuesday, March 2, 2004 5:59 PM CST Sorry for the late update.Everything is going great.Last week we started his second round of chemo on Wednesday.He did very well this time , not so sick.Today the nurse went to his school to draw blood. Hemogloben alittle low 8.5. They want to check again on Thursday instead of Friday.He may need a blood trans by Thursday.Dr Brecher will probably schedule for scans in about two weeks to see if the chemo is working.Please pray for Jordan Luke & his family.Little Jordan may get his wings any day now.And pray he doesn't have any seizers (sp).That he passes peacefully in his sleep. We love you Jordan.May God hold you and keep you in his loving arms.Cheryl & Don, all my love and prayers.
Wednesday, February 18, 2004 2:42 PM CST Hi all, No news is good news. Andrew is doing very well.The nurse was in at 7:30 this am for blood work.I haven't received a call so I guess his counts are holding.I think it could be the brownies he eats at 4 am. that keeps him going.Or the 4 slices of toast at 3am. He is so amazing. He will have bloodwork done Friday,so I will let you all know whats happening.LOve to all Wednesday, February 11, 2004 2:55 PM CST Well Andrew went to school today.Ready to go.He missed everyone. We had an appointment with his ENT specialist Tuesday. A follow up. Right now he is on antibiotics for a sinus infection again. And then a daily antibiotic till we can see about surgery . Right now our main concern is to get his disease stable again.Please God! Dr. Pizzuto noticed a change in his smile. David And I also noticed hes able to smile much better on left side of face. Thank-you God Amen! Amen!..Something is working. I don't know how fast Chemo takes to work. But we do see improvement.Thank-You Thank-you! THey take a licking and keep on ticking! Must go Andrew will be off the bus soon.We will keep updated. Love and Prayers to all. Sunday, February 8, 2004 1:56 PM CST Hi everyone,Sorry I know this update is long overdue.Lets see, Monday Andrew had his med-a-port put in at Childrens. He did very well.Tuesday we started Chemo at Roswell.He will be getting the same Chemo he received last time.Lets just say its been a rough week for him. He has been so sick from the chemo.He gets Zofan,Ativan,& decagron for all the nausea and vomiting.I think it finally working well after 5 days of trying.He is a trip, Thursday I ordered a pizza for dinner because we got home late.Didn't he get sick, and proceed to ask for a slice a pizza right after that.Gobbled down the pizza with Rooties blue cheese of course.And than ask me to make him a hot dog.At that point I was ready to throw up.He also at the hot dog. I think its finally hitting me now. I just loose it some times. I'm getting tired.But never do I ever give up. God will need to eat his wheaties to carry me this time.God and Andrew are my strength.Amen. A child with the energy of millions.Why?????So strong & so full of life!But we will get thru this. Back up on our horse and to the top of that mountain sweet Jesus!Always to succeed.Amen.I guess I just need to let loose and have a good cry.Do we ever run out of tears? How much can we cry? One foot in front of the other.Life goes on. I pray for all who live with any kind of illness.Not just cancer.I just don't know,these kids take a licking and keep on ticking. THank-you God! Pray for all our little friends living with this monster.Andrews little buddy Jordan. WE love you.Pray for God to give me alittle extra strength.Love and prayers to all.
Wednesday, January 28, 2004 4:27 PM CST Well as my hair gets grayer, I don't have to pay for salon highlights.HA HA! Where to begin. Surgery for sinus was postponed. Dr Brecher called last night with not so good news of course. Dr pizzito got a call about MRI done yesterday. There was an area in question. So we decided to lay our cards on the table first. We went in to talk to Dr Brecher today. He called NY to get results of scans last week. Apparently there is a pea size nodule in the area of left ear causing the bells palsy. His bone marrows are clear,thank God. So we want to start chemo again. He will have a line put in on Monday.And probably start chemo next week Tues. He is staring on the same chemo as before seeing he responded so weel to.If after 2 rounds theres no change then we will try ironntican.Checks scans after 2 rounds . And take it from there. I don't think its hit me yet. But maybe I think I was prepared alittle bit. When I saw the image of MIBG scan. Something did't look right.God is holding me up and carring me thru. He is my strength.Without him I don't know where Id be.Please pray for Andrew & all the other children fighting this MONSTER!!!!Love and Prayers to all. Tuesday, January 27, 2004 6:28 PM CST Finally home from Ny , very late Friday evening. Monday I had to take Andrew for a hearing test. Because of bells palsy. He's lost hearing in left ear due to left side weakness. But only temperary. Today we went to see ENT specialist about all this. He was glad to see us. He talked to Dr Brecher today about sinus surgury tomorrow . Its still a go . They are going to do a culture of sinus, and drain and open them up a bit.To help drain. I really hate to have him go thru any more, but if this will help with all the sinus infections hes been having. I want him to be able to go thru life without all these sinus infections. He seems ok with the surgury. He will be out of school about 5-7 days. Oh Boy! Alot of rest! YEH RIGHT! How do you tie them down! Someone please tell me! I am still waiting to hear from NY about all his tests. I pray to God he is still NED! Please GOD! Thats all we ask for ! These kids are so strong. Pray for them all. We need special prayers for Sabrina a friend,who just found out she relasped. Shes just turned 8 yrs old yesterday. She has ALL.Mom hang in there. God will watch over you all.Pray for all other children fighting any disease.Love and prayers to all. Will update after surgery tomorrow.
Tuesday, January 20, 2004 2:24 PM CST Hi everyone,Here we are at the Ronald Mc Donalds house. We got here late last night.We were suppose to get to Penn station at 5:55,NOT! We got there at 8pm.Go figure. A train broke down near the drop off. Fun!!So where do I begin. Well I ended up calling Roswell Saturday evening. And ended up in the ER till 2 am at Childrens Hosp.Andrew looked like there was something wrong the left side of his face was like he had some weakness. Couldn't close or blink left eye very well. So Dr Bamback called me back to take him to ER. It could be weakness cause by an infection. Not! Hes only been on antibiotics sinse November for sinus infections. Hello! Or he had a stroke. Well I flipped. They did a head CT. Showing everything clear. Thank -you God.Also bloodwork and counts were fine.Everything I think another relaspe.No way! Now they call what he has bells palsy. It goes away in time sometimes 6-8 weeks. It doesn't seem to bother Andrew much. I just have to give him drops every 4 hours and ointment in the eye at bedtime. I guess it stems from an infection in his system,but no antibiotics are given.It just runs its course.I think I can handle this.Now today he had his bone scan which I think looked fine. But who am I ?? Tomorrow is his asperation and mibg injection.We will be at the hospital at 8:30.Bone marrow asper. are at 10 am , MIBG injection is at 2:30. So pray the day goes well. Just as cold here as at home. We will be heading home Friday late. We are suppose to be back at Depew station at 9:05. Not never happens! All I pray is tests turn out NED. Please God! NO EVEDIANCE OF DISEASE!!! I will give another update soon. Pray for all our little friends fighting this monster too.Pray for Jordan spending quality time with Mom & Dad. And please God give the strenghth to get thru it all. Love and prayers to all. Friday, January 9, 2004 5:36 PM CST Hello everyone,Just wanted to let everyone know today was decision day.I don't think the agmenten has done any good.Andrew was up for 1 hour last night coughing. Dr Pizzuto decided to push up his surgury.He was scheduled for Feb 5th.WE could have had it done next week but Dr Pizzuto Doesn't want him traveling the following week.Seeing we are scheduled for tests in NY. So we will head to NY 1/19.Tests are 1/20,1/21,1/22.And we will head home Friday.I hate testing time just like eveyone else.Its horrifying!!His surgery is scheduled for 1/28 for his sinus. I pray to GOD that all tests are clear & this draining of sinus works for him.!!Please GOd!!So I guess I have a full month this month. He seems ok with it ,I've told him what needed to be done to help him.It kills me because you ask yourself how much more HELL can your child go thru! Enough is enough please.So we will continue antibiotics till finished hoping it will kick in and work.All our friends seem to be doing well, thank God!Little Jordan is doing Ok.Enjoying his days with mom & Dad.Pray for there strength to get thru this.All our Love and Prayers always!!
Wednesday, January 7, 2004 10:04 AM CST Hi everyone,Me again.Well to start we stopped his clindamycon due to the fact he was getting hives. So I called Dr Pizzuto,who is not in on MOndays.Drs. are never in when you need them most. He was doing fine,nurse Mary said his Ct scan of sinus was clear.So we will do a follow up in two weeks.So didn't Andrew wake up Tues am At 2:30 and cough for about hour and a half.So I didn't wake him for school. Called nurse back who now is a different nurse from yesterday.Who told me hes needs to be sick for 7 to 10 days before doctor will put on a antibiotic again.They don't want the children on antibiotics to much or they get amunned to them. Hello I know this ,been there done that. So finally I asked if she was aware that Andrew was a special child.And needs to be monitored? She was not aware he was a Roswell patient. So we were in ,in a heart beat . Had a 3:15 appt with the Dr. Now we know his ct was clear.we stopped antibiotics because of hives. Now Dr wants him to try Agmenten for another 10 days.In hopes that it will kill the bacteria. If by Friday hes there is no change.Dr Pizutto wants to do surgery.Open sinus,drain them and take a culture to see whats growing.To know the exact antibiotic to put him on.I pray to God this works I hate to take him in for another surgury.Haven't the kids been thru enough HELL!!!Lets all PRAY! PRAY! PRAY!!! NO surgery. I have to call nurse Mary by Friday!Also Andrew is still Hama positive.So blood work in four weeks. But we have to head to NY on 1/19-1/23 for tests.I am enjoying him so much that It kills me when its time for scans.Im terrified!!!But God will watch over us.He keep me strong or tries very hard to.Him and my ATAVAN!!THats all the news I have for today.I will updated on Friday.Love to all. PRAY! PRAY! PRAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Friday, January 2, 2004 5:32 PM CST Well I guess no news is good news.Although I received a email from a friend I meet at the Ronald McDs.House.His son lost his battle with cancer Dec 27, 2003.I called Ny today and Andrew is still Hama Positive. So we will send another blood draw in 4 Weeks.Andrews Appt.at ENT today,I messed up.We went to Childrens hospital for the appt. But we were scheduled at the satelite office. Oh well. Do drops happens.So I will have to call Monday morning to reschedule.So I have no info on new CT scan of sinuses.I will have to updated again next week. Also Happy Birthday to our little friend Jacob who passed away 12/18.And he would have been 5 yrs old today.Prayers are with you Mom & Dad.Also prayers for our little friend Jordan who relasped and failing quickly.God Bless all the children fighting any kind of deadly disease.Love to all!
Sunday, December 28, 2003 2:04 PM CST Hi everyone,Happy New year to all!! Hope everyone had a great Christmas.Ours was the bestest ever! I have never seen so many gifts in my life. Thank -you to everyone, Key bank who adopted us as a family for Christmas.Who sent wonderful gifts from Santa. More than I ever expected.Aunt Donna who always make it very special for us. Camp Good Days who also did a great job. It has been truly amazing!! I can't thank everyone enough. Also our special neighbors across the street,I think we adopted one another. Thank-you Mary Bell & Brian,& kids. We love you! God Bless everyone! Prayers for Jacobs family, he passed away 12/18. Its a diffacult time right know,only time will heal and prayers from friends and family. Prayers also needed for a good friend Jordan . His relaspe was so severe mom & dad decided not to do any more chemo. We love you Jordan.God won't let you suffer. This is just eating me up inside. I just pray so hard for all our friends,Taylor,Morgan, Courney etc. We love you all!! Always in our prayers. We are one big family. Well getting back to Andrew , hes doing well. He goes for a ct of sinus tomorrow and see ENT Dr. 1/2.pray this goes well. I hate to have to tell him another surgery. Lets stay positive. Love and prayers to all. Will updated after DRs appt. Thursday, December 18, 2003 7:25 AM CST Life is so boring these days youd think I would have the time to journal! Ha Ha!! Well we had another trip to Roswell to see the doctor.He has been on three antibiotics sinse Nov.12. He had a CT scan of sinuses on Tuesday. Showing Chronic sinucitus. Now after being at hosp. from 7am.Its was noon before we left.Now refered to an ENT specialist Who could see Andrew at 3:45 pm. at the clinic at childrens.So we went to lunch and then to clinic. This doctor seams very good,really knew his stuff. Right now he changed some meds and wants another ct scan the end of month to see if medicine is working. One is a antihistamine,the other is a saline spray with some kind of antibiotics in it. One step ata time . Also talk of taking out his adnoids.also talk of sinus culture which he would have to be put to sleep for. Hes back at school. Loving it. He knows Aunt Sharon is coming after Christmas, he can't wait to see the kids. Can't wait for Santa either. But all in all he is doing well.Thank-you God Amen! We still need prayers for our little friend Jordan. Also Prayers needed for our special friend Jacob who took a turn for the worst. He was having trouble breathing so they had an xray done showing his disease growing and pressing on heart causing it to work harder. He now is on oxygen at home. We all need to pray hes around to see Christmas and his birthday Jan 2. Plus all the other kids fighting this monster. We love you all.
Wednesday, December 10, 2003 9:48 AM CST Hi everyone, We need lots of prayers for are little friend Jordan Luke. He has relapsed.He has a large tissue on the spine which it has paralyzed him. He can't even sit up alone.He also has other masses in body.He is starting chemo to see if he reponds to treatment.So lets all pray very hard for him.He is a joyous little 4 yr old boy.We love yoe Jordan!!Lots of love and prayers.
Monday, December 8, 2003 4:45 PM CST Hi everyone,Tis the season.Another trip to Roswell.Andrew has had a sinus infection sense the first of November.Has been on Augmenton for twenty days.Dec 2 called Drs again, antibotics not working.Changed meds again for 10 days. Not working. He is coughing so much flem & mucus up every night.And just bringing up everything. They took a chest X -ray . Lungs are clear. Thank God.Now he is on his third antibotic w/sudefed and a nasal spray once a day.Pray it clears this time.He up all night coughing. If I don't see any improvement hes scheduled for a ct scan of the sinuses next week.What happened to our some what normal life we had for awhile.He is doing ok otherwise.Loves school,can't wait for Santa.Doing well.I pray the medicine works well this time.So he can get a decent nights sleep soon.keep all of our friends in your prayers.Especially Jacob & joshua!Love and prayers to all Wednesday, November 26, 2003 3:54 PM CST Lets start off by saying Happy Thankgiving to everyone!!Lets not eat to much! Ya right!! Well I called Sloan at 4pm this afternoon to get the results of his hama blood test. He is still positive. We have to send another sample the week of Dec 24.I really didn't have it in me to go to ny.At least my tree is up already. There was NO WAY I was putting up a tree in the middle of December after coming home from NY ,if we had to go.I wanted to spend a quiet Christmas at home.I guess God herd my prayer.Hes doing good,still on antibiotics for a sinus infection.Plus a double ear infection.Can't win.Love and prayers to all, we love you and miss you.
Monday, November 17, 2003 5:56 PM CST HI all, Not much news to tell.Andrew is back on antibotics again for a sinus infection.We decided to put up our Christmas tree today.Seeing that we might go to Ny the end of the month.We will go to Roswell Wednesday morning for a blood draw to Fed X to Ny. I will know the results on 11/26.I will update when I know other wise hes doing fine.Please pray for all our friends fighting this MONSTER!!!Special pray for our little friend Jacob who is going through some pain with his disease.Also our friend Joshua who had his transplant last week going thru some rough times.Love and prayers to all! Friday, October 31, 2003 11:58 AM CST Here we are ,another month goes by and Andrew is still positive for Hama.So I guess we will be around for Thankgiving.I have a feeling we will be down to NY the beginning of Dec.Oh well,gotta do what ya gotta dooo! Do doooes!!He is enjoying school,his friends across the street.And tonight HALLOWEEN! He can't wait.We will go with his coucins down the street. Supper is in the crockpot , so Daddy can eat when he gets home. Its a beautiful day very warm.But then its going to rain.POOO!Keep all the special children in your prayers.Love to all.
Tuesday, October 28, 2003 1:33 PM CST Hey Roll Fans,Andrew had his Halloween parties lastweek and had a blast.I did receive some very sad news on Thursday evening.Andrews Chemo buddy and friend went to be with the angels Thursday.He was only 10 years old.He had Leukemia.Please pray for our friend Joshua and his family. Andrew is doing well. Eating alot of candy.Hes all excited to go with his cousins for halloween.He also has a party at school. Must go before the boys get home.Love to all. Wednesday, October 22, 2003 4:41 PM CDT Hello everyone,We went to Roswell to do a blood draw to Fed-X to Ny to test for Hama.I should know the results on 10/29.Dr Brecher said he seems congested. I think we are fighting a sinus infection again. But he didn't prescribe antibiotics yet.He said if he gets worse to call him. He now weights 43 pounds and grew another inch.His pants are getting to short.Hes doing good other wise.He went for a flu shot Sat.And ended up with a low grade fever that night. After that we went to MaMa Lous to pick pumpkins.He had a great time.He loves to get together with the kids. We also took His cousins Alison & Steven.It was a fun weekend.He has a halloween party thurs at the Bills stadium with Roswell.And a party with camp good days Friday.I wish my life was boring.Please pray for all our friends.May God keep them all safe. Thursday, October 16, 2003 11:07 AM CDT Hello Andrew Fans, NO news is good news.He is doing well.Aunt Donna took him to a cornstalk maze on Saturday.He had a ball.This weekend he gets his flu shot , than we will go to Mama Lous to go pumpkin picking. He can't wait, he wants the biggest one. Friday he has a trip with Camp Good Days to see Dragon Tales at Sheas.Next week he has two Hallowen partys.Life is far from boring lately.Keep all our friends in your prayers fighting this monster disease. We love and miss them all. Friday, October 10, 2003 11:06 AM CDT Hi folks,Things are good here.Not much news to tell.I think Andrew is getting alittle cold.Tis the season.Does it ever end??One Dimatap in the Am and school bells are ringing!!WE are going to be sending another blood draw for hama soon. I just pray we are not in Ny for the holidays!But you have to do what ya gotta do! We start our FINAL ROUND OF ACCUTANE!! YES! YES ! Thank -You GOD! On Sunday.I finally got my new car.Many thanks go out to my brother Joe,who helped me to get it.Thanks again Joe ,I love you! Im free again ,The walls were caving in on me.I couldn't go anywhere.After a week of being in the house my sister in law Donna picked me up to go to Walmart because we ran out of toilet tissue.Oh No!Not a problem I had the News paper standing by.We shopped till we droped.We got home five mins before andrews bus dropped him off. Lets pray for all our NB children.Pray for little Jake who is on morrifine for pain.Joshua, that he gets the ok for his bone marrow transplant.Christi,Taylor.Moragan and all the other children we love and miss. Sunday, October 5, 2003 1:32 PM CDT To all our friends and family,Now that our nerves are finally settling down some,after the shock of last week.We are all doing well.Andrew is still positive for hama.I will send a blood draw in a few weeks.Andrew is now asking for a portable DVD player to take on our train to Ny.Again this saggy baggy lady will have to work a few street corners to be able to purchase.Anyone know where I might find one not so expensive.Let me know.I would love to get one for him.Hes doing well in school,he is also in a reading class,to help with his reading.He love it.His school pictures were the week we were in Ny. But we do have a makeup day.Amen! Nov4th.Pray for all our friends fighting this monster ,too!Love to all!
Friday, October 3, 2003 7:56 AM CDT Ok now Im alittle frustrated. Is anyone even bothering to read Andrews web page.I take the time to update everyone,no one is signing in his guest book.This may be a free web site for the family to update everyone,but it costs caring bridge.Think about sending them your donations.WE had a frightining day Wed when Dr kramer called me about his scans last week.All scans and the asperation were normal,thank-you God!But they saw an abnormality in his head on ct scan.Enough to scare the dodoes out of me. I was a basket case.So we had to go to Childrens Hosp. Thurs for a MRI,Dr Brecher called me back around 6pm last night.With God listening to my every Prayer.There was no abnormality found on the MrI. Thank-You GOd AMEN! AMEN!He still tests positive for Hama.But he doing great other than a sinus infection.And LAST LAST ROUND OF ACCUTANE FROM HELL next week..Amen!Pray for all our friends also fighting this monster.Pray tests go well for Josh next week.Love to all Friday, September 26, 2003 2:48 PM CDT Hi everyone,Thank-God its Friday.Well Ct scan went well today.He was in a total of about a half hour.He did very well.He was finished about noon.But had to stay to play in the playroom for awhile.So we got back to Ron McD's about 2:30.Now we must pack and clean our room.Our train leaves Saturday at 1:45. I can't wait.The fun never ENDS! Seeing that I was in a car accident the Saturday before we left.I need to car shop now.Because my car was a 96 with high miles the Ins co totaled the car.I feel I am getting the shaft with the settlement the Ins co gives me.But I guess you can't fight city hall.I have to work the street corners to help afford a new car.What do you think that the saggy baggy ladies get these days.I played lotto today maybe I can be lucky here in Ny.There seems to be alot of winners in NY.My Mom was with me when we were hit.I just Thank- God no one was hurt.You can replace the car,you can't replace the people. The person that hit me was Andrews friend at school.His father,they live not to far from us on Tonawanda CR.Can you stand it!God is not suppose to dish out more than I can handle.But lately some times I wonder.Im telling you my batteries are draining and getting very weak!!!I feel my world is falling in on top of me!And I can't get up!Get it Falling and I can't get UP!!!Ha Ha!!Pray for all our neuroblastma children.Pray for our friend Joshua,hope the stem cell collection went well.Pray I find a great deal on a car.Maybe My brother will take me Monday to find something. Also my little buddy Jacob has been on my mind lately.Hope everything is going well for him and he is doing oK.I will get the results of Hama blood draw and tests.I Pray all went well.I figure no news is good news!!We will update soon.Love and prayers to all! Thursday, September 25, 2003 2:53 PM CDT Hi everyone,Today was Andrew MIBG scan.A long scan.First scan was 30 mins,the next two 40 mins.The last scan he fell asleep.So things went well.Tomorrow is his Ct scan,we have to be there at 10:30 am.And thank-you god home saturday.!!Amen.I don't have any results yet.But Dr Kramer will call me next week.So keep praying we need it.My nerves can take it any more.plus keep all our other friends fighting this disease in your prayers.Love to all Wednesday, September 24, 2003 11:22 AM CDT Hello everyone,We had a good day today.Bone marrows were done about 9am.He did very well.We have a 2pm appt. for our mibg injection.I tryed to see if he could the injection sooner,but i guess it doesn't get delivered till 2pm.So stayed in clinic.They had a pizza party.So we are still here.His scan is schuduled for 9:30 Thursday.He is doing well.He had to have a iv line put in but he did ok with it.They will take it out Friday. We will head home Saturday.Prayers go out to Joshua,who will have a stem cell collection tomorrow.Good luck Christine & Joshua.Hope you will be feeling better tomorrow.Prayers to all our friends still fighting this monster.!!Love to all. Tuesday, September 23, 2003 3:51 PM CDT Hi everyone,Here we are at the Ronald mcd's house.Today we went to hospital at 9:30am.Today we had our bone scan.Looked goood to me,whos the expert here!Tomorrow we are scheduled at 8 am for bone marrow asp. and then a mibg injection at 2pm.The scan is Thursday.He had losts of blood drawn today. I asked them to do a hama blood draw which they will do tomorrow.So far he doing fine.I hate tomorrow.I wish he didn't have to go thru it so often. Keep him in in your prayers, and all the other children fighting this monster.Love to all. Tuesday, September 16, 2003 11:37 AM CDT Hi guys,Sorry I haven't updated.Not much news to tell.I took Andrew to the doctors yesterday.His poor nose was running like a faucet.And couching like crazy.Then he started to bring up alot .So it turns out he has another sinus infection.Better now than when we go to Ny next week.We are taking the train down Monday to Ny.His tests are scheduled Tuesday thru Friday.Please pray to God that all goes well with all the tests.We will head home Saturday.I will keep everyone updated starting Tues. from the Ronald McD house.He just started his 5th round of accutane.Thank -you to Aunt Donna we now have a few pictures to view of Andrew.Now all I need is a camera to do it myself.I guess I better start working the street corners just to be able to buy one.Love to all.Keep all our friends in your prayers. Wednesday, September 3, 2003 6:26 PM CDT Hi everyone,Well today I called Sloan Kettering to find out that Andrew is Hama positive,which I knew.So we won't be leaving for antibodies on Sept 7.We will be back in Ny the week of Sept 22 for tests.FUN WHOW!!!Today was his first day of school. It sounds like he had a great day.A very long day.His day starts at 9am till 3:30.He never got home off the bus till 4:40.I hope that time gets better in time.I have another lists of scholl supplies to get.Boy they don't want much these days, just an arm and a leg! He is doing very well.Finally off accutane for 14 days,thank-God.His lips can get back to normal.Our little buddy Jacob is finally home as of today.Please keep him and all the other children fighting this monster in your prayers.Love and prayers to all.Love Deb
Friday, August 29, 2003 4:22 PM CDT Hi everyone,Accutane from HELL is kicking in.His whole body looks so sore.He handles it quite well except for the itching from dryiness.I have tried everything I could think of that I could find to rub him down good.But he says everythings burns. I even talked to a pharmacist and she suggested Bag Balm.If it will help the teaters maybe it will help Andrew!Tomorrow is his last dose for 14 Days.YES!!And Dr Kushner tells me parents want to kkep there kids on longer.NOT IN THIS LIFE TIME!!! Two more rounds and we are done.Thank-you God Amen!He is getting alot of playtime with his cousin Alex.Please keep all of our friends in your prayers.Especially Jacob who is having a very hard time with fevers & very low counts.We will keep in touch.Love and prayers to all DEb Wednesday, August 27, 2003 6:17 PM CDT Hello Friends & Family,Can we all say extra prayers for all the other children fighing this monster disease.We need prayers for Taylor, Jordan,Jacob,Morgan,Christi.All are a part of our family now,Not only do I worry each and every day about Andrew,I also worry and pray for Our friends we meet in Ny.I love them all.Pray for all the MOms to have the strength to get thru this.Its not an easy road to travel.God please give these kids to fight as hard as they can fight.Dear God give them the strength.PLEASE! They didn't ask for this.They don't understand.But they are like the energizer battery that keep going & going.I only wish we all lived closer to one another, to cry together,vent together, hug together,pray together and last but not least drink together.Amen! Getting back to Andrew,he is doing ok.Bloodwork was done today for Hama,like I stated earlier.I will know results probabaly 9/3.Hes due for next round,9/8,but he will most likely be Hama positive.Dr Kramer wants to schedule tests Sept 22.So we will back in nY soon.Only for 3 or 4 days.Andrew is having fun with his couscins, Aunt Sharon is staying with NaNa till she can move in her new house .Andrew will be starting 1st grade Sept 3.A longer day for him,one hour longer,the bus wont get here till probably 4:20.I think hes ready.I know I am for sure.Love and prayers to all Love Debbie Wednesday, August 27, 2003 9:14 AM CDT Hi everyone,Sorry its been so long sinse I journaled.We live a dull and boring life.Today this am Annmarie from Essential Care came to draw blood to fed-x to Sloan to check for Hama.What is hama you ask.Hama stands for "human anti-mouse antibodies".Hama measures how strongly the bodys immune system is reacting to the 3f8.3F8, like most monoclonal antibodies, comes from a mouse white blood cells;this means that 3F8 looks different from a human antibody and a human will form antibodies (HAMA) against 3F8.If a patient has Hama, there is no point in administering 3F8 treatments because the HAMA will block the 3F8 from getting to neuroblastma cells.However Hama can disappear,when that happens , we can resume 3F8 treatments.We check for HAMA by a blood test.Patients with HAMA do not have pain or other side effects of 3F8 treatments,but patients without side effects sometimes do not have HAMA(and can continue to be treated with 3F8) Is HAMA good or bad? Hama might be a sign that a patient is developing an immune response against neuroblastma-and thats is a ggod thing.It is probably best that a patient receive at least four cycles of 3F8 treatments.We will continue later.Love to all. Tuesday, August 19, 2003 6:58 PM CDT Hi yall,Boy its great to be home.Andrew is doing great.Swimming like a fish.We went over to Uncle Joes today,Andrew couldn't wait to get in the pool.He had a blast with his cousin Alison.Could not get him out to go home to fix dinner.The nurse from Essential Care came today to do bloodwork.I'm proud of him ,he did very well without his tubes to draw blood.Then we went to the Essential Care picnic today,it was very nice.But our loser nurse Dawn decided to go to Ireland instead.LOSER!!!All in all we had a great day.Say a prayer for our little friend Jacob who is back in the hospital with a fever.Stay strong Chanda & Jacob we love you.God Bless to all. Sunday, August 17, 2003 3:20 PM CDT Hi everyone,The Rolls survived the Blackout of 2003. What a nightmare.The power went out when I was going to send all updates for Thurs.He still had no pain with his antibodies also no pain meds this time.He probably has Hama.He made up for it last week all the pain he had, poor kid.With the blackout no treatments were done on Friday.Yah!Go Andrew!Thursday evening we spent with our friends Chery, Don, & Jordan. With the nightmare on the streets.Don walked down to Rotisriee grill to find something for dinner.No electicity no food.People were going bonkers for food ,flashlights and batteries.We had dinner in the room and talked.Andrew just loves Jordan.By 8 pm.It was very very dark in the room. So we decided to go to our room and go to BED,nothing else you could do with no power.The only good thing was I always bring a flashlight.But the room was darker than Dark!.I thought we would just put the chain on the door,and leave open alittle for light.But Andrew was scared someone would put ther hand in to open the door.Then he thought there was going to be a fire in the house,because we were not allowed to use any candles.And what if someone did.I also brought a travel alarm.Good thinking.Set it for 9 am to return to hosp.Power finally went on around 9:30am.Thank-you God!Amen! With no treatments Friday,I decided to pack.Thinking we would not get out on Saturday due to power outage anyway.But the man upstaires was watching over us.Our train left on time on Sat 1:45Pm.Go Roll, Go Rolls,We were only delayed by 30 minutes.Alls well that ends well.Andrew is doing great.Starts accutane from hell and glucan.We will probably have to go back to Ny the end of Sept. for tests.But hes due back for 3rd round of antibodies 8/8/03.But will probably be hama,for awhile ,we will see.Keep him in your prayers.Hes listening.Love to all Debbie & Andrew : )
Wednesday, August 13, 2003 4:53 PM CDT Hello everyone,Today was another quiet day for Andrew. No pain. I guess he has Hama again.He had alot of pain last week.But doing well. Can't keep him out of the playroom,but I always know where to find him.We will finish up the week with the last two rounds of antibodies.He will have blood drawn for hama prabably Friday.He can't wait to get home to swim. He wants to go to Uncle Joes.He has no more tubes!!! Thank-you God!!!Amen!We will be heading home Sat.I can't wait!Check us out tomorrow for more details.Keep all those prayers coming.Hes listening!!Love to all Debbie & Andrew
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