Nicole's Page of Hope

Welcome to Nicole's webpage. Nicole was first diagnosed with an "inoperable" brainstem tumor, technical name is a low-grade brainstem astrocytoma -- focal intrinsic tumor of the pontomedullary junction, when she was 3 1/2 on July 5th 1992. She is now 18 and the fight continues. The beast will not leave us alone ...

Check Out Nicole's Smile Quilt!




During our time as part of CaringBridge and the PBT Nicole and I have made many long distance friends, some are still with us while others have earned their wings. Caringbridge no longer allows us to link to other Caringbridge families but the names stay to honor the families and children.

Angel Emerald

Angel Ray-Anne ***Ray-Anne's Angel date is March 8th. Please keep her family in your thoughts***

Angel Sarah

Angel Tori

Angel Savannah *** March 9, would have been Savannah's birthday. Please stop by and share some good thoughts with her family ***


Angel Celeste


Angel Katherine


Angel Cheyenne


Angel Paige


Angel Garrett


Angel Adele

Angel Esther

Angel Nicholas

Angel Maddie

Angel Michelle

Angel Naomi

Angel Allison

Angel Carter

Angel Pam

Angel Oliva Grace

Angel Carter

Angel Jamie

Angel Harrison

Angel Dani-Ella

Angel Ana

Angel Jessie

Angel Jarrod

Angel Bear

Angel William

Angel Sarah Marie Pochy

Angel Ryan

Angel Brianna

Angel John Daley


Angel Ryan
** Ryan earned his wings 3/03/06, please say a prayer for his loved ones***



Sammi
***Sammi is in the hospital and not feeling well. She and her family could use some extra prayers. mi/Sammijean, sure you all can figure it out***


Spencer

***I lost the way to his page, forgot where he lives! Anyone know how he is please email me ***


Catie


Peyton


Ross




What we want is a miracle, what we need is a cure!


American Brain Tumor Association

Accuray Information

Brain Tumor Society

Brain Tumor Trials and Treatments

Childhood Brain Tumor Foundation

Children's Brain Tumor Foundation



Thank you for your prayers, support, and friendship!

Journal

Friday, December 21, 2007 7:32 AM CST

Greetings ~

I have not posted in a very long time, not even sure if anyone even checks Nicole's page any longer. Last year at this time Nicole was in the hospital recovering from her 4th brain surgery. She did very well and was home by Christmas ... it was the best gift ever!

At that same time, as I was seeking emotional supoort and facing the possiblity of Nicole not making it until the surgery, there were some rude posts left in the guestbook. I felt like I had to defend myself to a stranger that did not know a thing about me or my family. It was energy that I did not have to spare and time that I did not have to waste. So, I decided that those who wanted updates and truly cared about Nicole could email me personally to find out how she is doing.

It has been a year. A year of healing. A year of change. Nicole's tumor has been stable, she is spending this Christmas with her Grandmother in OK. Her next MRI is in January. The surgery was hard on her but she has come back better than ever.

My relationship with my partner of 10 years did not survive the stress of Nicole's last battle. I tend to focus on Nicole and block out people when Nicole relapses. It has been the end of many friendships in the past 15 years. Only those who have been through it completely understand ... only those who have been through it can give the support a parent needs to help their child.

On a sidenote. I am creating a book of hypnosis scripts that can be used to help small children through tests and treatments ... as well as the parents. Children have wonderful imaginations and visualization can help take them out of the situation at hand and put them in the park or playing soccer, riding horses on a rainbow, wherever they feel safe. Pain can be shut off, fears can be taken away.

Blessed Solstice, Merry Christmas, Belated Happy Hanukkah and Kwanzaa ... Holiday Cheer and Happy New Year.

Sky, Nicole, and the girls.

Hospital Information:

** Home **
PO Box 1675
Peralta New Mexico 87042

Links:

E-mail Author: Shefem@aol.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.