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We love you!!
Trish and Braeden

caringbridge.org/visit/braedenknight

We love you!!
Trish and Braeden

caringbridge.org/visit/braedenknight

I could envision Lucas sitting there, watching Scooby Doo, and laughing his famous gleeful laugh! It brought a big smile to my face! Thanks, Lucas!

We keep you in our hearts and prayers always!

Love you!
Trish and Braeden

caringbridge.org/visit/braedenknight

Sending you Love!!

Trish and Braeden

caringbridge.org/visit/braedenknight

Hi Sam! It was so wonderful to see you at the MLD conference - I had so much fun with you and Pat! I look forward to seeing you again in the spring. Tell Abby and Dave I said hi, and tell Lucas I said [our code!] (You know, Pick, roll, flick!) ha!!

Love you!
Trish and Braeden

caringbridge.org/visit/braedenknight

GVH or psoriasis? I don't know that there is a "better" of the two! I get occasional psoriasis, and it's just the biggest pain. It responds well to Methotrexate. I really pray that the GVH clears up, and that Lucas can be completely weaned from the steroids.

We love you and think of you always!

Love,
Trish and Braeden

caringbridge.org/visit/braedenknight

Happy Father's Day, Dave!

Praying for you all!

Love always,
Trish and Braeden

caringbridge.org/visit/braedenknight

Just stopping by to say "Hey!" to Lucas! (And a great big "Hi!" to Dave, Sam, and Abby!)

You are always in our hearts and prayers.

We love you,
Trish and Braeden

caringbridge.org/visit/braedenknight

Hello Beautiful Viscomi family!
Just stopping by to see how my favorite little blue-eyed shrimpeater is doing! Hope you all are doing well, and I hope I get to see you while I'm there. Sam, I sent you an email.

Much love,
Trish and Braeden

caringbridge.org/visit/braedenknight

Love,
Trish and Braeden

caringbridge.org/visit/braedenknight

What a great pic of Lucas on the front page! He looks absolutely wonderful. This update sounds really positive, and it sounds like Lucas is doing pretty well. I hope you guys are doing okay....the death of loved ones is always hard, especially around the holidays. I'm praying for you all.

Love,
Trish and Braeden

caringbridge.org/visit/braedenknight

Just thinking of you all. Thank you for letting me know about Frank. I'm so sorry. If there's anything I can do for you from here, please let me know.

Lots of love and big hugs,
Trish and Braeden

caringbridge.org/visit/braedenknight

Thank you so much for keeping us updated. Praying that this trial works for Lucas, and that GvH -- along with MLD -- is a thing of the past, and soon!

Love y'all!
Trish and Braeden

caringbridge.org/visit/braedenknight

Checkin' in on you guys tonight, and still praying for good days for you all.

Love always,
Trish and Braeden

caringbridge.org/visit/braedenknight

I love the new pic on the front page! Lucas looks so good, and Abby's so pretty. You and Dave look good too, Sam! We're still praying for you all -- here's to good days!

Love,
Trish and Braeden

caringbridge.org/visit/braedenknight

Samantha, how I wished we could have seen you while we were there! We made a train stop in Little Silver, and I told Brae, "This is where the Viscomis live!" She reads your website with me, and keeps up with Lucas and Abby. It would have been so nice for her to see and meet you all. She and Lucas, as well as she and Abby, would have hit it off so well! There will be another time -- hopefully soon!

Love to you all,
Trish and Braeden

caringbridge.org/visit/braedenknight

Lucas,

God bless,love & hugs,Linn,
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Saturday, August 5, 2006 2:08 AM CDT

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Thinking of you guys today. Hopefully the doctors can come up with a solution to the skin issues. I hope you have a good vacation without issue. Lots of love from Texas.
Rhonda (http://wwww.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Sunday, July 30, 2006 5:41 PM CDT

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My grandson has a very similar skin condition, as I think I've mentioned. All the expensive creams did not help. I kept telling his mom that it could be the alcohol in the creams that they have used on him since birth, since I am allergic to it. They finally tried it, after 6 years. Voila, no more skin problems. How wonderful if it could be that easy for Lucas - just an allergy. I will pray hard that the doctors do find what it is soon. I just can't stand the thought of Lucas suffering like that.

Okay, then. "Pick, roll, flick" to you and Trish, Lucas! :)
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI - Sunday, July 23, 2006 6:49 PM CDT

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It's great to hear you guys are going on a much needed vacation.My thoughts and prayers are always with you guys.Lucas is a true hero to me and gives me reason never to complain.I wish all of you peace .Wanted to tell Lucas that Chris always asks about him and Lucas always was someone that he loved and gave my son un-conditional love and i thank you Lucas for that because it has made a ever lasting impression on him.I truly belive that through our lives we meet special people that we take little pieces of and shape our own personalities thru those experiences and Lucas you always had a smile and a hug for Chris on the Soccer field it was truly awesome too see.You are just another reason to believe that there is a God.
CHRIS TIERNEY <christtierney@aol.com>
RUMSON, NJ - Sunday, July 23, 2006 7:49 AM CDT

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Happy 4th of July Lucas!

from your California friend Emma, who also loves shrimp and spiderman!

Take Care,
Emma McGregor
www.caringbridge.org/ca/emma <samnash@theemmafdn.org>
Walnut Creek, CA - Tuesday, July 4, 2006 6:42 PM CDT

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Sam and Dave, I am praying hard for this insurance mess to be cleared up. We have gone through that, and we fought and appealed, and fought and appealed....got Dr. H to write a letter, and then appealed again. We finally won the appeal, but it wasn't without putting up a good fight, and threatening to get a lawyer. I hate that it has to come to that. So we'll keep praying, and believing for a turnaround soon. If not, perhaps we can get some fundraising going, and see if we can get some help your way! You don't need this hanging over you, with all you have to deal with. We will see victory in this!

The pics are fabulous!

Wishing our "Victorious Viscomis" a very happy 4th!!

Love,
Trish and Braeden

caringbridge.org/visit/braedenknight
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Tuesday, July 4, 2006 12:14 AM CDT

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Stopping by to say Hi to all. I love the family picture. Thanks for stopping by Nathan's site. It's good to know we are still thought of. Tough days for Brandon losing Nathan and his Dad in such a short time but he's doing well... Hang in there Lucas, we think of you often.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Sunday, June 25, 2006 3:38 PM CDT

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Rages or rashes - great choices ... But praise the Lord that Lucas was there to wish Dad a Happy Father's Day.

Here's to shorter commercials and longer times between Botox! Lucas, you rock!
Carolyn Wyman <re_born@sbcglobal.net>
Belding (Triumphant Trimper Trio Country), MI - Sunday, June 18, 2006 10:42 PM CDT

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Hi Lucas,
I'm sorry you're not feeling all that good right now. I will be praying that you and your family have a better week.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Sunday, June 18, 2006 8:46 PM CDT

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Hi Lucas!! I miss seeing you & Mom everyday at school. I hope you're feeling better & can come back to school soon.

Maria XO
Maria P. <MPon44@aol.com>
Belmar, NJ USA - Sunday, June 11, 2006 6:05 PM CDT

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I'm heartsick to read that you are back to constant care, when I had hoped that Lucas could be off the prednisone once and for all. But I am grateful that he has parents who do not think twice about giving him all the care he needs. I do pray that the Cellcept and Prograf work to end the need for the prednisone, assuming they have less side effects.

Lucas, we are so glad that you are home and able to keep up some semblance of normal! You keep up the great work of being your comic self, and we will keep praying! Deal?
Carolyn Wyman <re_born@sbcglobal.net>
Belding (Triumphant Trimper Trio Country), MI You Pray for Life - Saturday, June 10, 2006 2:47 PM CDT

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I think of you all so often. I'm praying hard for the GvH to clear up, and that the Prednisone can be discontinued very soon.

Love always!
Trish and Braeden

caringbridge.org/visit/braedenknight
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Saturday, June 10, 2006 2:43 PM CDT

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Always praying!
Robin Bonney and Family <rgbonney@suscom-maine.net>
Freeport, Me - Saturday, June 10, 2006 6:45 AM CDT

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Checking in often to see how things are. I hate that Lucas's skin is giving him so much trouble. Sounds like you are on a path to getting it under control. Hang in there - lifting you in prayer every day.

Angel Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbosk, TX USA - Friday, June 9, 2006 1:20 PM CDT

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RachelJoy continues her recovery here at home. Each day, she bounces back a little bit more.
I am praying that your family is also enjoying a blessed week.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, June 7, 2006 9:04 PM CDT

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Hey, I recognize that guy with our newest 12 year old! Sam's brother, right? :)

Loving you all!
Carolyn Wyman <re_born@sbcglobal.net>
Belding (Triumphant Trimper Trio Country), MI My CB Page - Thursday, May 25, 2006 10:25 PM CDT

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It was great for us to have you at the house for his second birthday party with POP. Everyone gets to drop in and see you. It was certainly a good day for you. We all love you.
Uncle Calvin and Aunt Kathy <rangers@rcn.com>
- Tuesday, May 23, 2006 5:26 PM CDT

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Hi Lucas,
I'll be praying for you and your family this week.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Sunday, May 21, 2006 10:52 PM CDT

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Thinking of you guys so often. Sounds like Lucas has had a good run, and that is great news. Hoping for more good days to come.

Angel Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbock, TX USA - Tuesday, May 16, 2006 8:13 AM CDT

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TWELVE years old? Where did the time go??? Happy Birthday, Big Guy!!! What a blessing you are!

The whole update was enthralling --- especially that Lucas is off the prednisone, my nemesis! I have a slider thing (a very slick piece of material) that I used when I was very sick, as well as a lazy susan-like thing that helped me get in and out of the van. If those things would benefit Lucas, I would be happy to send them to you. Let me know.

God bless you all as you continue to make Lucas' life rich and full. Truly, God bless you.
Carolyn Wyman <re_born@sbcglobal.net>
Belding (Triumphant Trimper Trio Country), MI My CB Page - Saturday, May 13, 2006 8:35 PM CDT

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Hi Breakfast Companion!

HAPPY HAPPY HAPPY BIRTHDAY TODAY. I hope you enjoy the cookout and you have lots and lots of laughs.

Your news update looked good and am very pleased that you are doing well. Also, that you have been attending your school so regularly and that you enjoy it so much. I have been speaking to Grandma a lot and she always tells me when she has seen you all, so am pretty up to date on what has been happening in the Viscomi household.

Uncle Eric and I think of you lots and lots and we speak about you often, so you are never far from our thoughts. We'll be thinking of you today on your birthday, and hope that you have a wonderful time with the family around you.

Don't forget Lilo and Stitch want some birthday cake too, so make sure everyone leaves a little bit on their plate - that's my boy.

Lots and Lots of love and XXXXXXX from Auntie Penny and Uncle Eric.
Penny Conway <pen6735eric@btinternet.com>
London, UK - Saturday, May 13, 2006 6:39 AM CDT

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It was nice to read your update and hear how Lucas is doing. Have a nice mother's day weekend. You know I think of you all often.
Rhonda (http://wwww.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Saturday, May 13, 2006 0:42 AM CDT

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Dear Lucas,

I smiled when I read about you at Red Lobster. The thought of you laughing there makes me so happy! I'm sorry it's been a while since my last note to you. My mom is not well. But I have not thought of or prayed for you any less. You and your family are always in my heart.

Samantha - Have a wonderful Mother's Day as you so deserve!
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Friday, May 12, 2006 8:23 PM CDT

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Hi Lukie

Just a quick hello from London England, to wish you a happy birthday today
We all send you our love and to let you know that you are always in our thoughts along with your Mum, Dad and wonderful sister Abby

All our love Melanie, Ian and Auntie Zelma
ian russell <ian.russell16@btopenworld.com>
london , england - Wednesday, May 10, 2006 4:41 PM CDT

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May your Mother's Day be very blessed.

Stephanie and RachelJoy <mom2rj@comcast.net>
- Monday, May 8, 2006 5:16 PM CDT

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Checking in... will call tomorrow!!
Donna A-Sweeney <mitchells_world@yahoo.com>
- Friday, May 5, 2006 9:37 PM CDT

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I wish I could be there for the Spaghetti dinner....I love Spaghetti! Praying for Lucas' allergies. I totally relate....mine have been horrible this season! I'm glad that tax season is now over....now maybe life can return to normal in the Viscomi household!

Love to you all,
Trish and Braeden

caringbridge.org/visit/braedenknight
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Monday, April 24, 2006 10:17 PM CDT

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Sorry, Carolyn, don't mean to gross you out....but "Pick, Roll, Flick" is my joke with Lucas....and he likes it! Hehehe!

Wishing you all a very blessed Easter today, and praying you all are well. Dave, hope your life settles down some now....and you can take Donna up on that drink!

I love the pic on the front page. Sam....I wish my hair would do like yours! I just love it!

"I thank my God every time I remember you" (Philippians 1:3, NIV).

Love to you all,
Trish and Braeden

caringbridge.org/visit/braedenknight
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Sunday, April 16, 2006 7:19 PM CDT

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Hooray for Dave..you made it through the day and now only the stragglers are the ones you must reckon with!!
Now about that drink....?:)
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, April 15, 2006 5:23 PM CDT

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Checking in ..loving the new pictures!! Abby loving the sparklie tank ...Lucas your smile is contagious!! Maybe Mitchell and I can swing by tomorrow for a hello to keep you company if Dad is in PA?? Love to see Mom-Dave hang in there 4days and counting!! I say a good drink is in order and maybe some Sushi too? I will call you guys tomorrow at a more resonable hour!!
Hugs-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, April 12, 2006 9:35 PM CDT

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May your Easter be blessed with God's grace and power.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, April 12, 2006 12:02 AM CDT

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Hi to all! It sounds like April 16 can't get here soon enough :) It's great to hear that you're pulling together to keep your chins up on those difficult days. That's what family is all about!

My husband set up some software to track articles on MLD and some related topics - www.EmmasFoundation.org , then click on MLDWire. Please let us know if you have any feedback, or if there are other articles that you're aware of that aren't listed.

Erin@EmmasFoundation.org <Erin@EmmasFoundation.org>
Walnut Creek, CA - Tuesday, April 11, 2006 11:56 PM CDT

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Hey there, Lucas! I always think of your poor dad and mom around tax season --- my aunt had the same job, from her wheelchair, and tax season was when I was needed the most! I loved helping her with little chores so she could work. I keep thinking how nice it would be for Mom to have someone extra around the house at this time, too. What do you think?

Oh, I wish Trish would forget about that "Pick Roll Flick!" Yuck! :) You do beat all, Lucas! As for commercials, I would suggest recording your shows without them, then playing them back, but I bet you can't wait that long, and that would just be one more thing for Mom to do!

Abby, I'm glad you're keeping busy - which thing is your favorite - art or sports? I know, apples and oranges. I hope you don't get crazy like Chrissy O and join the Polar Bears, at least!

God bless you all as you make your way to another wonderful spring and gorgeous summer. It is always my goal, and so far, so good! :)
Carolyn Wyman <re_born@sbcglobal.net>
Belding (Triumphant Trimper Trio Country), MI Susan's Miracle - Saturday, April 8, 2006 4:56 PM CDT

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I LOVE the picture of you guys with Jonah!! That was such a fabulous surprise when I came to your site!! You know things have been cookie and I have not checked in here with you...but I do enjoy hearing you when I call! Abbie-my stomach is growling for those cookies!! Dave& Sam- you guys are amazing and well....you know!! Lucas my love -I have new whistles so how about we start turning those "screams" into some real fun...bet dad will love the music we can make while he is working;)!!
Always thinking of you and can't wait to see you!
Donna
D Anderson-Sweeney <dailytrials@yahoo.com>
Eatontown, NJ - Wednesday, March 29, 2006 9:54 PM CST

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Just stopping by to read the latest update. I came by the other day, and as I was signing the guestbook, something came up that demanded my attention....I think of you always, though, even when I haven't signed, and I keep you all in my prayers. Saying some extra ones for you, Sam, as you deal with everything while Dave is working extra hours. You all are amazing....tell Lucas I said, "Pick, roll, flick!" :-)

Hi Abby!!

Love to you all,
Trish and Braeden

caringbridge.org/visit/braedenknight
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Saturday, March 25, 2006 6:06 PM CST

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Hi Lucas and family .Just wanted to drop a note before young Chris and I head off to nationals in Lake Tahoe for Snow Boarding.We think of you often Lucas and you give us strength and courage .I wish you and your family the very best.All my love and prayers
Chris Tierney <christtierney@aol.com>
Rumson, nj - Saturday, March 25, 2006 5:22 PM CST

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It's good to see your update. I think of you often. I've been missing Nathan alot since he would have been 20 on the 14th. And April 1 st will be 3 years since he's been gone -- already. Seems only like it was yesterday but then again sometimes like many years. When I think of how long Nathan has been gone and how long it's been since we were in Minnesota, it amazes me knowing how long you have been giving so much. Your wonderful parents dealing with a mindless destructive disease, I am glad that Lucas has you to care for him. Your great people. Lots of love to you. If you get a chance come by Nathan's site. I have posted some pictures of when he was a baby, the one on the front page a 6X6 scrap book page.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, March 16, 2006 8:38 PM CST

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Hi Lucas and Family,
Just want you to know that although I don't sign your guestbook often, I check up on you all the time. Always with warm thoughts and prayers.
Robin Bonney <rgbonney@suscom-maine.net>
- Wednesday, March 15, 2006 6:47 PM CST

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Hi Viscomis! I'm sorry about Lucas' spasms....I pray those stop altogether, or at least get under control - soon! We are home from the hospital, and healing, slowly but surely. I hope you all are doing well. You're in my thoughts always...you're part of my Jersey family!

Love,
Trish and Braeden

caringbridge.org/visit/braedenknight
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Tuesday, February 28, 2006 6:35 PM CST

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Hi Lucas.... Your Daddy and I met after the Polar Bear Plunge yesterday! He is as crazy as I am! I am not sure if you will remember me, but I am a Tomaino follower. We met at the walk a thon last summer (it was a whole lot warmer that day than yesterday!) I had dinner with your wonderful Mommy and all of the ladies. I am sorry to hear about your spasms. Please keep working hard and keep on smiling and laughing- no matter what the reason!
Love and prayers,
Chrissy Oppegaard
Chrissy Oppegaard < beachbummommy@optonline.net>
Neptuen City, Nj USa - Monday, February 27, 2006 7:41 PM CST

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Hello my friend, Lucas!

If you think I haven't been thinking about you, you're wrong!! I honest to goodness think about you every single day. I was so happy to see a new picture of you & Abbey when I checked in today.

I'm sorry about your spasms. I'll pray about those (among other things for you!). Keep moving that arm, buddy! Follow your grandfather's way!

Much love to you and your family,
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Wednesday, February 22, 2006 7:22 PM CST

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Hi all

21/02/2006

We have read the update and are sorry to read of Lukie's spasms.

We hope this improves very soon.

Nice picture of Lukie and Abby and the cat!!

We always marvel at the sheer strength you all have in dealing with your situation and the love and kindness you show to each other.

You are wonderful parents and a world top family.

Although we are far away we think of you everyday.

Love to you all.

Mel and Ian Russell
Ian and Mel Russell <ian.russell16@btopenworld.com>
LONDON, UK - Tuesday, February 21, 2006 10:34 AM CST

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It's good to see your update. I think of you often and know how difficult it must be sometimes. But I also know you do what you have to do to take care of your children. Thank God for the laughter no matter the reasons. I have one video where I can hear Nathan laugh and it sings to my soul. Your in my thoughts. All of you.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen , TX - Sunday, February 19, 2006 11:46 PM CST

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Lucas, I'm glad that things are settling a little for you with the body vest - we have a lot of spinal defects in our family (scoliosis, spina bifida, and many others), so we are often faced with what to do, as well. Once you decide on a choice, it is such a rest.

I was fascinated with Lucas spasms, as they sound very much like Susan's "seizures." She also cries and then laughs, and they have lasted for hours, and even days. Of course, hers are determined to be due from brain tumors, but it still is interesting that Luke has similar ones. Since Wyman humor has always been a little odd (they crack up over the Three Stooges, even the girls), I can see that perhaps this explains Susan's over-the-top humor at times!

I'm so glad to hear that Pop is doing well - my dad had that surgery done back in 1979, and even then the odds were 97% success. Amazing, huh? One thing to watch for, though, is a personality swing - MORE stubbornness! It will subside. My mother-in-law, who also was a sweet person like my dad, had the same reaction. Must be all that extra blood flow! :)

I'm so very sorry for the loss of Abby's friends' mother - please give our condolences.
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI Susan's CB page - Saturday, February 18, 2006 9:54 PM CST

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Thank you for your update. I don't sign in too often, but not a day goes by when I don't think of Lucas and pray for all of you. My kids do the same.
As you say....Godspeed.
Love,
Robin Bonney and Family <rgbonney@suscom-maine.net>
Freeport, Me - Friday, February 17, 2006 5:28 PM CST

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RachelJoy and I continue to pray for your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Thursday, February 16, 2006 7:57 PM CST

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Happy Valentine's Day. Thinking of you all. Lots of love to you.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Tuesday, February 14, 2006 3:45 PM CST

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Hi Lucas! I'm sorry it's been sooo long. I hope you and your family are doing well. I always tell Lamont to say hi for me-I hope he does or else! Maybe I can come visit you sometime if that wouldn't be too much of an imposition. Thinking of you-Luv (your old but hopefully still favorite teacher)-Stacy
Stacy <stacypecchia@yahoo.com>
Manalapan, NJ USA - Thursday, February 9, 2006 3:30 PM CST

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Hi Viscomis! I love the new pic on the front page. Lucas looks soooo good!

Thanks so much for checking in on Braeden! For anyone who wants to check in, you can visit the CB page at http://www.caringbridge.org/visit/braedenknight, or by clicking here. She's getting better and stronger. We don't have a timeframe yet, of when we'll go home, but all that matters is that my baby keep getting better.

I continue to think of you every day, and lift you up.

Always,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Wednesday, February 8, 2006 6:07 PM CST

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PLEASE PRAY for Trish Knight's only child Braeden, 17, who is in PICU in Amarillo as of yesterday. She has been diagnosed with a rare illness that causes her body to reject nutrients. She will be in PICU a minimum of two weeks. She has stabilized, but as we all know, it is "the prayer of faith that saves the sick." Jesus be praised!

Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI TRIUMPHANT Trimper TRIO Territory - Tuesday, January 31, 2006 6:02 PM CST

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Hi All. Sorry to hear the latest about Lucas's spine. Lucas so touches my heart. What an awseome kid having gone through more than most see in a lifetime. My thoughts and prayers are never far. Remember to embrace the moment. Love you guys.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Tuesday, January 31, 2006 11:24 AM CST

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Hi Lucas and the rest of the clan. It's been a while since I stopped in and I am glad I did. Keep laughing and all our prayers are with you.
Ziggy, Lynne and the kids <lehrkinder@comcast.net>
Little Silver, NJ - Thursday, January 26, 2006 9:42 PM CST

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Happy Birthday Samantha! Happy belated Dave! Lucas- you have amazing parents-I celebrate them along with you !!
All my love-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
around the corner;), NJ - Wednesday, January 25, 2006 10:58 PM CST

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One of the best updates ever! Thanks, Lucas, for being such an inspiration to all of us - even if you rather not! :)

Flick flick.

I'm so very excited about your skin doing well especially, as my grandson has a similar condition (his is from an immune system disorder).

God bless you all as you continue to keep us posted. It means more than you can know.
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI TRIUMPHANT Trimper TRIO Territory - Thursday, January 19, 2006 8:42 PM CST

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I've come by, and thought I signed the guestbook on this latest update...but maybe I didn't?!? I'm so glad Lucas is doing so well. And Miss Abby....she's beautiful!

Love to you all!
Trish

caringbridge.org/tx/samstennis
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Sunday, January 15, 2006 8:15 AM CST

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Just stopping in to say hello. Thinking of you all.
Jeff <jtrimper@cms.maisd.com>
Stanton, MI - Thursday, January 12, 2006 7:40 PM CST

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We hope 2006 will bring you strength,love and good news.

Keep smiling Lukie.

Mel was delighted to have seen you recently after so long.

From the The Greenwich Meridian line @ zero latitude we wish you a happy new year.

Love

Mel,Ian and auntie Zelma.
Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, United Kingdom - Sunday, January 1, 2006 9:10 AM CST

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Hi Lucas, i was just thinking about you and your family and hope you had a great Christmas and holiday season. When ever i feel sorry for myself or feel sick I think of you and you give me strength.I wish nothing but good things for you and your family.Lucas you and your family are true inspirations to me and my family and you will always be in my thoughts and prayers.God Bless you always....
chris tierney <christtierney@aol.com>
rumson, nj - Saturday, December 31, 2005 6:26 AM CST

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I apologize to all my Caring Bridge friends for not being able to post much (or anything) in the guestbooks. I am unable to sit for more than 5 minutes at a time. It will get better, but for now I must obey my body!

Lucas, I think your picture with Santa is your best ever! You look soooo good! I'm sorry to hear about the congestion and cough, but that is something we are all dealing with this time of year, so that just makes you one with us! :) God bless you and your wonderful family with a joyous New Year!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI TRIUMPHANT Trimper TRIO Territory - Wednesday, December 28, 2005 7:19 PM CST

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Just wanted to write and let you know that I am thinking of you this holiday season. Best wishes from Iowa!
Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Saturday, December 24, 2005 10:01 AM CST

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Dear Lucas and Family,
We wish you a Merry Christmas and a Happy Hanukah.
Bless you all!

Love,
The Bonney Family <rgbonney@suscom-maine.net>
Freeport, Me - Friday, December 23, 2005 5:41 PM CST

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Praying for big blessings on the Viscomis tonight! Hope your holiday preparations have been fun, and I hope you all have a very Merry Christmas!

Love to you all,
Trish

caringbridge.org/tx/samstennis
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Tuesday, December 20, 2005 8:52 PM CST

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May your Christmas be very blessed.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Monday, December 19, 2005 11:32 AM CST

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Hey Lucas! It's been quite awhile since my family and I have last seen you and your beautiful family. Lately I have been thinking about the time you came over to my home and hung out with us for several days. Do you remember going to the Cubs game and seeing Sosa? Too bad they didn't make it to the Series this year... but the White Sox did! I actually went to the parade in downtown Chicago and as I was standing in the middle of thousands of people, I thought how cool it would be if you could visit again. I hope you're keeping warm amidst all the snow... make sure your heart and soul stay strong and hopefully I will see you soon. Happy Holidays!

Eugenia and the Kim Family <twinkle2468@comcast.net>
Long Grove, IL USA - Wednesday, December 14, 2005 12:49 AM CST

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Thanks for the nice tribute to Dr Krivitz. I started to say that he seemed to be a "character," but I didn't know if that would seem a negative thing to some people (I happen to LOVE characters!); then I saw that Jane T had written on Ashleigh's site that he was a character! So, I was right! What a blessing he was to save Lucas! I'm sure he was so very happy that he was wrong about the prognosis! I'm so sorry we lost him.

I'm glad to hear that Lucas infection is staying in the upper regions! And that Abby enjoyed the art therapy. God bless you as you continue to enjoy your kids!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI TRIUMPHANT Trimper TRIO Territory - Sunday, December 11, 2005 10:41 PM CST

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Hi Lukie

Yes Auntie Mel is coming to see you at last.She will be flying on the big bird out of the Uk on Friday.

She is looking forward to it.

The picture of Halloween looked great fun and your sister and mum look great.

Sorry I cannot make it to the USA this year but hopefully it will be soon.No doubt Auntie Mel will give me all the news.

Keep that great smile.

Love to you all.

Uncle Ian
Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UK - Monday, December 5, 2005 6:22 AM CST

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hi lucas and family.i havnt dropped in in a while.i wanted you guys too know you are always in my thoughts and prayers.Lucas you are and always will be one of my true heroes.If you guys need anything at all please call.Our Love and thoughts are with you and your family Lucas. The Tierney's... ps its just not the same being in rumson.We really miss Little Silver and all the terrific people in the town.God Bless
Chris Tierney <christtierney@aol.com or ctierney@knight.com>
Rumson, NJ 07760 - Sunday, December 4, 2005 11:05 AM CST

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Hey Viscomis! Hope you all are doing well, hope you had a wonderful Thanksgiving, and hope all your Holidays are happy, and healthy!

Hugs to you all,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Thursday, December 1, 2005 10:16 PM CST

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Thinking of Lucas and your family. I hope he gets past this illness quickly.
Cindy (Max, Maddie and Sam's aunt)
Albany, NY - Monday, November 28, 2005 6:18 PM CST

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Happy Thanksgiving (well tomorrow) ...I guess better earlier then later! I saw the forecast for possible snow..don't worry Bobby promised to call tonight and if not, I will be personally sending him over to dig a path if the blower is not working:)! Dave-we 've got you covered -no worrys! I will try to call tomorrow and check in on my favorite family to wish you the best Thanksgiving yet! Lucas- no stealing the drumsticks...Abby- no mashed potato wars. Sam & Dave- just relax & enjoy!
all my love-
Donna
D. Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, November 23, 2005 7:30 AM CST

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Hope you all have a very blessed week, and a Happy Thanksgiving!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Sunday, November 20, 2005 8:33 PM CST

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I love the Halloween picture. Halloween was one of Nathan's favorite holidays. It is good to hear that Lucas is steady. Hopefully the winter months won't bring him down. I think of you often and after Maddie's funeral decided that I will tell the whole story of Nathan's life. Her family did a wonderful job of sharing the whole Maddie. Nathan and I had 16 years together before he was diagnosed with MLD and his life was much more than that 14 months before he died. Know I think of you often. Tell Lucas and Abbie I said "Hi!"
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, November 14, 2005 11:46 AM CST

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I really appreciated your words of support in our journal. Thanks for checking in on Emma and we'll keep Lucas in our prayers too!

Samantha (MLD mom to Emma in California)
www.caringbridge.org/ca/emma <samnash@theemmafdn.org>
Walnut Creek, CA - Friday, November 11, 2005 11:11 PM CST

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Well, Killer, you looked pretty cool in your costume! I've always called my first born Killer, because he was 9 1/2 lbs and I'm not so big. I'm glad you won first prize, but I think Mom's kitty costume was worthy as well! :)

As for the rat, I think Lilo or Stitch should have had a go at him. Just kidding!

I'm so very, very glad to hear that you are kicking soccer butt! Gotta love you, Lucas! You rock!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI TRIUMPHANT Trimper TRIO Territory - Friday, November 11, 2005 1:21 AM CST

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Hello Viscomi Family, I was thinking of you today & wanted to let you know so. I love the pictures & the good update on Lucas...especially the kicking the ball part! Congrat's on the Halloween contest & please be sure to tell Abbey that I think she is one of the best sisters ever. Much love & friendship to you always.
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Tuesday, November 8, 2005 1:18 PM CST

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Hi,
Just stopping by to say we love you.
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Monday, November 7, 2005 10:22 PM CST

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Hi Breakfast Companion!

What lovely photographs of you all in your Halloween costumes - you deserved to win the prize as you looked great. Uncle Eric and I will be seeing you very soon and am sure Abby will tell us all about the fun you had. Do you think she was telling Lilo to wake up because she wanted to tell her too? Keep that smile smiling and stay well. You've been so good lately and it's so nice to know.

Lots of love to you all. XXXXXXXXXXX
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Sunday, November 6, 2005 8:27 AM CST

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Awwww!! I love all the new pics! I have to know - Dave, who did your clown makeup? Fabulous!! The pic of Dave and the kids is priceless....Lucas, I don't know that I'd want Tame Rat crawling on me....no, my style is more like Abby -- laying down with my kitty or my dog beside me. I hope you all have a wonderful weekend!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Saturday, November 5, 2005 8:39 AM CST

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Love the new picture.
Always in thoughts and prayer
Robin Bonney and Family <rgbonney@suscom-maine.net>
Freeport, me USA - Friday, November 4, 2005 6:44 PM CST

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Hi,
I think you guys might get a kick out of this.

Goofs for Killer Klowns from Outer Space (1988)

Crew or equipment visible: When the farmer goes in his house to get supplies, the prop master is visible inside the doorway as he exits.

Continuity: Before Dave pops the giant clowns nose with his badge, it is clear that his last name is spelled H-A-N-S-E-N on the badge. However, in the credits it is spelled H-A-N-S-O-N

Revealing mistakes: When Mike & Debbie first come upon the big top in the woods, Debbie's right arm disappears due to her crossing into the matte shot.

Crew or equipment visible: When the clown monster is coming out of the toilet you can see the puppeteer's arm.

Continuity: When Joe first looks out of the car window to see the Klown-without-a-car, the clown has no headlights on his feet, but does in all other shots.

Revealing mistakes: When people move the hanging bags of cotton candy, they're obviously far too light to hold a body.

Continuity: When Mike and Debbie run out of the wood toward the car, the balloon dog is missing during the next quick shot of the Klowns chasing them.

Continuity: When Debbie is attacked in her bathroom, the little clowns bite holes in her shirt. Later, when Mike and Dave rescue her, the holes are gone.

Hope you enjoy.
Love,
Auntie Cory
Auntie Cory <coryandstephen@aol.com>
Guttenberg, NJ - Tuesday, November 1, 2005 6:13 AM CST

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Hi Guys,
Sorry it's been ages since we've posted.
Yes, I know the Killer Klowns and I think you must have looked great! I can't wait to see pics of the costumes. We had fun on Halloween. Stephen & I each wore a large-sized Pathmark bag and filled it with groceries and Jonah wore a Police Constable uniform (from UK). People thought he was a cab driver though, and kept asking him if he got nice tips!!! We'll email photos when we get them.
Anyway, we miss you and look forward to seeing you soon.
Lots of love,
Auntie Cory, Uncle Stephen & PC Jonah
The Cowans <coryandstephen@aol.com>
Guttenberg, NJ - Tuesday, November 1, 2005 6:09 AM CST

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I can't wait to see pics of the Killer Klowns! Glad Lucas is doing so well. I know all about the extra time it takes for skin care....I break out at the drop of a hat, it seems, and it gets worse with wintry conditions. Abby, I know you are good medicine for Lucas! You're good medicine for me, girl! You kept me laughing when I was there! Sending lots of love your way, and keeping you all in my prayers!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Monday, October 31, 2005 10:16 AM CST

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Just checking in to say hi. You remain in my prayers!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Thursday, October 27, 2005 10:27 AM CDT

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I love the picture on the front. Thinking of you today and wanted to say HI!! Lots of love to ya...
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Tuesday, October 25, 2005 8:15 PM CDT

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Wow-
It has been awhile since I have posted! I do however think of each of you daily! Can not believe Halloween is here again...Abby I hope you find a "boo-tiful" costume today with your mom! Lucas- I can't wait to see what you will be this year?! I sure hope Bobby doesn't get into his Mr. Incredible mood again-HAHA! Well, I will call again tonight but just wanted to post to you and say "hello" and remind you that we think you are "truly the best"!
all my love-Donna...
and Lucas, your partner in crime sends...
nose picking & flicking wishes-Buddy Mitchell!
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, October 22, 2005 2:55 PM CDT

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Just checking in - keeping you close in thoughts and prayers! Hope Lucas is doing well! Abby, how's school going? Wanted to let you know that Carolyn is home from the hospital...she still needs prayers, but she is home.

Love to the Viscomis,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Thursday, October 20, 2005 10:18 PM CDT

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Hi All, just checking in with you all across the other side of the pond. I know we havent written for such a long time and really sorry about that. We know you had a nice day with Auntie Zelma, Uncle Stephen Auntie Cory and Jonah recently. They tell us over in London that you are doing well Lukie. So great to hear that.

Auntie Zelma arrived home the other day and really enjoyed her stay in New York

Sam the picture of the three of you in the pool looks great.

Hope all is well

all our love, we are thinking of you all as always

Auntie Mel and Uncle Ian , London England
melanie Russell
london, united Kingdom - Thursday, October 20, 2005 8:03 AM CDT

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Hi Breakfast Companion!

I haven't written for a while but I read the updates every day to find out how you are. Also I speak to Grandma and Grandpa many times during the week, so I know that my lovely nephew has been doing well and managing to go to school as often as he can. It's all good news. Keep it up little one and enjoy your day at school with your friends.

Uncle Eric and I will be coming to see you soon and we look forward to seeing your lovely smile again. It's been nearly a year since we were last with you and we're counting the days to the beginning of December when we will get on that big 'plane and fly with the birds! So you just keep that big smile smiling for us please.

Lots of Love to you, Mom, Dad and Abby and of course Lilo and Stitch.


Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Wednesday, October 19, 2005 10:50 AM CDT

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Just wanted you to know that I was thinking of you today. Gosh - those pictures of Lucas remind me of so much. I know you do not update every day, but for some reason - I check just about every day. Keeping all of you in my thoughts and prayers.

Angel Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbock, TX USA - Tuesday, October 18, 2005 1:23 PM CDT

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Hi Viscomis! Lucas, you are really something, buddy! Going to school every day -- wow! I'm so thankful you're doing so well! I continue to pray for you. Speaking of prayer, our dear friend Carolyn Wyman needs prayer right now. I'm copying and pasting a note I've left in several other guestbooks:

Dear Friends, when you read this could you please stop a moment and pray for Carolyn. Steve called me today, and said she had to go to the doctor (or the hospital - I don't remember exactly). He said that the cancer has returned, and she is really being attacked by the enemy of our souls. Carolyn and Steve are both working a "Walk to Emmaus" (Spiritual retreat) this weekend, and Carolyn is determined to be there. Carolyn is so faithful to pray for everyone else, now she is in need of our prayers. Please lift her up.

I set up a guestbook for Carolyn, if you'd like to leave her a message. If the link posted doesn't work, you can go to: http://pub37.bravenet.com/guestbook/3130176903/

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Thursday, October 13, 2005 10:29 PM CDT

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Hello Lucas and family,
It's been awhile since we've signed your guestbook, but want you all to know that we check your sight often and keep you in our prayers. Happy New Year and Yom Kippur.
Love,

The Bonney Family <rgbonney@suscom-maine.net>
Freeport, Me USA - Wednesday, October 12, 2005 7:11 PM CDT

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Hello Viscomi Family and a belated Happy Birthday to beautiful Abbey! What an amazing sister she is to Lucas...

Lucas, I'm so glad to hear things are going well in this last update, though I pray for your peace & relaxation. Think about you all the time...it must be a crush!

Much love to everyone,
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Sunday, October 9, 2005 8:45 PM CDT

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Checking in to say Hi!!!
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Friday, October 7, 2005 10:13 AM CDT

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Stopping by to check on Lucas. Hoping he's doing well, and I hope you all have a great day today!

Love always,
Trish

p.s. Hi Abby!!! :-)

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Wednesday, October 5, 2005 6:23 AM CDT

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Hello Viscomi's,
I don't think I've ever signed this book but I want you to know that I think of you often and continue to keep you in my prayers. When I am at a service at MRT, and hear Lucas' name mentioned, I immediately visualize his beautiful smile. I hope the fall season brings you many pleasant days!
Be well, Judy
Judy Raybon <jraybon22@comcast.net>
- Wednesday, September 28, 2005 11:31 AM CDT

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HI LUCAS AND ABBY---I WAS CHECKING THE WEB PAGE AND DECIDED TO WRITE EVEN THOUGH I TALK TO EVERYONE ON THE PHONE. MISS YOU. HOPE TO GET DOWN THIS MONTH FOR THE DAY BUT THIS IS ALSO A BUSY MONTH. I WILL BE SEEING ALL OF YOU THIS MONTH FOR STEPH'S BABY SHOWER. HOPE ALL IS WELL TODAY. JUSTIN HAS BEEN DOING REAL GOOD WITH FOOTBALL. TOO BAD YOU COULDNT MAKE THE GAME THIS PAST FRIDAY NIGHT. HOPEFULLY YOU'LL BE ABLE TO MAKE THE NEXT HOME GAME IN 2 OR THREE WEEKS. SEE YOU REAL SOON. LOVE YOU BOTH VERY MUCH.
AUNT KATHY <RANGERS2@RCN.COM>
NAZARETH, PA USA - Sunday, September 25, 2005 11:54 AM CDT

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Hi Lucas! Praying for the GvH to go away....tell Abby to give you kisses from me, ok?

Abby, Happy Birthday, sweet girl!! I hope you have a great celebration!

Hi Dave and Sam!

Love always,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Saturday, September 17, 2005 9:51 AM CDT

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It so good to see your update. Hi Lucas and Happy Birthday Abby!!! I think of you often adn am so glad I could come for the walk in NJ. I am headed to Paris, Tenn. on October 1st for the walk there with the Stennis Foundation (Trish Knight). I will think of you all when we walk.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, September 15, 2005 8:58 PM CDT

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Ah! An update! I'd about given up (just kidding!). Oh, it is good to hear that Lucas is doing so well, but I continue to pray that he will come off those meds. I hear from the Evanosky site that some doctors want these kids to just suffer through the GvH and that they think it will go away that way. I can see their point, but the poor child! But I really do think the long-term meds play a part in the GvH and pray about that often for Lucas and Maddie especially.

So Lucas is happy at school and Abby gives him his kisses and life is good. Thank You, Lord!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI Triumphant Trimper Trio Territory - Thursday, September 15, 2005 4:59 PM CDT

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Checking in on the Viscomis! Hope you've had a great week, and I hope your Labor Day weekend is incredible!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX - home of Dr. Sam Stennis (www.caringbridge.org/tx/samstennis) - Friday, September 2, 2005 7:43 PM CDT

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Hope the trip was fabulous!!!Lucas-I heard you had two great ladies at your side and then of course the best Miss Abigail!! What a lucky guy you are!
Can't wait for a visit or a trip to Shiki again!
Big HUGS & high fives-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, August 28, 2005 7:32 PM CDT

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What a great picture!!!

What a lovely smile Lukie!! and also from your beautiful sister.

It has travelled very well across the pond to Ye ole England.

We think of you always glad things are keeping together.

Happy Anniversary Sam and Dave.Do you remember the coincidence when Mel and I were sitting next to you at London's Heathrow airport, you were returning home from your honeymoon and we were off on holiday to Florida.What was the chance of that???

The date of that meeting was 1st September 1990, where have those years gone?

Have a great time with wishes of happiness and good fortune for the future.

Sorry been so long contacting you.

Life has been hectic here workwise.

Love to you all.

Melanie and Ian
Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, United Kingdom - Friday, August 26, 2005 12:19 AM CDT

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The picture is great! What a wonderful way to unwind at the end of each day.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Wednesday, August 24, 2005 9:14 PM CDT

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Hello Friends, what a fabulous picture! It's exactly how I always picture you in my minds...smiling. It's a tough, long haul everyday, God bless you. But Lucas continues to fight so hard and Abbey continues to be a remarkable sister. Our day of triumph over this disease will come.

Have a wonderful, wonderful time on your trip. You so deserve time alone back together.
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Tuesday, August 23, 2005 7:50 PM CDT

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Now that's a picture of a 1000 words! What absolutely gorgeous smiles. And now that I've met you in person, I can read the updates with the sound of your voice in there. Cool. My husband's aunt is British, but your accent is so different. Sam. Jersey Brit, I think I'll call it! :)

Lucas, you do look amazing! Abby, you're such a good sister - you are everything your parents say about you on this site. I can imagine you in the backyard with Dad practicing soccer. I'm glad the weather has been improving there - I check everyday on my Weatherbug to see how it is for you and the Tomainos in NJ and Jane in NC, because I know how hard the heat is on Lucas, Anthony, Laura Grace, and Max & Maddie (I don't think anything stops Sam T. and Matt T,, do you?).

Praying that Lucas continues to do so well with his routine, his Botox, and his PT. I'm so glad you got the funding to help with gas to school. Just in time, I'm thinking!

Lucas, keep being the great kid you are as we pray for a cure. It will come, sweet boy. It will come!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI Triumphant Trimper Trio Territory - Tuesday, August 23, 2005 11:40 AM CDT

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AWWWWW!! I love the new picture! It sounds like things are going really good, except of course - the GVH. That will clear up soon - I just know it. Abby, you are such a sweet, loving sister. Dave and Sam, I pray big blessings on your time away this weekend! Have fun!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX - home of Dr. Sam Stennis (www.caringbridge.org/tx/samstennis) - Tuesday, August 23, 2005 5:47 AM CDT

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LOVE the picture -you all look great ...relax and enjoy your weekend trip!!
HUGS -
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, August 22, 2005 10:46 PM CDT

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Checking in on Mr. Lucas -- and Miss Abby too! Dave and Sam, hope you're doing well. I'm putting a little package in the mail to you tomorrow.

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX - home of Dr. Sam Stennis (www.caringbridge.org/tx/samstennis) - Wednesday, August 17, 2005 8:31 PM CDT

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Hello from Iowa! I don't write often but you are in my thoughts alot. Enjoy each day the best you can. Hugs coming your way.
Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Friday, August 12, 2005 8:35 AM CDT

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checking in on one of my favorite guys!!
Big Hugs-
Donna
D.Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, August 11, 2005 8:55 PM CDT

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Hey Lucas! Pick, roll, flick, buddy! (hee hee hee)
Hope all the Viscomis are having an awesome week. Thanks, Sam, for the "mail" you've sent recently! I've been in Florida all of last week, but since I've been back, I've worked on gathering info for you (after this laptop crash). I will send that to you -- hopefully by the weekend.

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX - home of Dr. Sam Stennis (www.caringbridge.org/tx/samstennis) - Tuesday, August 9, 2005 11:08 PM CDT

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Oh wow...that's awesome news about the jeep. I loved seeing all of you and can imagine Lucas's excitement over the jeep. Lots of love to all of you. I enjoyed meeting everyone.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, August 8, 2005 3:20 PM CDT

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Sam,

I know I owe you an email. I will write and send soon. Just know we are thinking of you guys daily. Lucas looks so good in the pictures. And Abby is looking mightly spiffy in the KMLD in the butt shirt.
Jane Trimper <jtrimper@cms.maisd.com>
Stanton, MI - Sunday, August 7, 2005 7:03 AM CDT

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Sounds like things are looking up for Lucas...or at least settling down. What music to your ears to hear him laugh.

Cindy (Max, Maddie & Sam's aunt) <cindy.blanchard@fmr.com>
Albany, NY - Friday, August 5, 2005 7:48 AM CDT

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Mona Lucas, your sister is a hoot! So, of course, are you - just being around you is a delight! I'm so thrilled that you got to ride in the car without your wheels! That has to feel so good! It's been a few years, but I used to have to ride in a wheelchair in the car, too. It didn't feel good at all. So I can relate to your wonderful new freedom!!! God bless the man who gave your parents a break on the price - makes up a little for those who don't understand.

Keep up the great work of being Lucas - Mona and all!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI Triumphant Trimper Trio Territory - Wednesday, August 3, 2005 8:56 PM CDT

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Dave & Abby,
I was checking out Stennis Foundation and saw your page. My thoughts and prayers are with you, and Lucas, always.

Mike
Mike Laverty <Michael.Laverty@kraft.com>
Little Silver, NJ USA - Tuesday, August 2, 2005 9:31 PM CDT

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Great photos from the walk. Thanks for sharing! I hope that school is going well for Lucas.
=)

Erin
www.caringbridge.org/CA/McGregorMLD <Erin@EmmasFoundation.org>
Walnut Creek, CA - Monday, August 1, 2005 11:39 PM CDT

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Hi Breakfast Companion!

I have just seen all the photographs of the WALK held last Saturday and they're terrific. You look so good and everyone seemed to be having great fun. I'm glad it was so successful and that it was so well supported. I've just spoken to Grandma and she told me what a wonderful time everyone had. It was held for such a good cause and hope that in time MLD will be kicked well and truly in the BUTT!

Lots of love to you, Abby, Mom and Dad.
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Saturday, July 30, 2005 11:21 AM CDT

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What a great day on Saturday!! Can't wait to get together ... bowling???
Hey-I only open my mouth for those dental girls at the dentist too! They are very nice and even better they let you watch a video-
See you soon-
Buddy Mitchell
MAS <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, July 26, 2005 10:18 PM CDT

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p.s. Samantha, I'll send you all the contact info we talked about. Don't forget to send the pictures to me, and I'll put them on our "Brick" Walk page!

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Tuesday, July 26, 2005 7:48 AM CDT

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Samantha, Dave, Lucas, and Abby,
What an honor and a privilege to have met you in person this past weekend. Our "Gals Night Out" on Friday night (once I actually got there!) was so fun. And the Walk on Saturday -- oh! Words escape me. Thank you for the great hospitality after the Walk -- a very special thank you to your parents for having us in their home. Lucas is such a delight, and Abby a true joy. A home filled with love and laughter - how awesome is that? I could go on and on - but must go to work now. I have something to say to Lucas, tho, before I go:

"Where is the fox?"
"The fox is in the box!"
"The fox is HOT in the box!"

"Minnesota"

and last but not least - we mustn't forget this one:

"Pick - Roll - Flick!" LOL!!!

Love to all the Viscomi's,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Tuesday, July 26, 2005 7:45 AM CDT

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Hello, Viscomis! Thank you so much for allowing me in your home and getting to see sweet Lucas and adorable Abby (and the plasma TV, Lilo and Stitch, and Yu-Gi-Oh madness everywhere!). The laughter at your mum and dad's, Sam, was especially precious. What a great family you have! In all your struggles, never forget that - the Lord put Lucas in an amazing family. And Dave, keep up the great work with Lucas, and your baseball team. I'm so very glad you have that outlet.

God bless you, Lucas, as you continue to kick MLD in the rear end, you adorable Fox! Seeing you move those hands and arms and fighting back is a memory that will comfort me many nights.
Carolyn Wyman <re_born@sbcglobal.net>
belding, MI Triumphant Trimper Trio Territory - Monday, July 25, 2005 10:47 PM CDT

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It was so good to see all of you this weekend. The walk was great and I am glad I was able to spend time with your family. Hearing Lucas laugh was music to the ears and it was great to hold his hand. Lots of love your way.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, July 25, 2005 2:57 PM CDT

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Lucas, it was so nice to meet you and your family today at the walk. I loved watching you smile when I asked about the "fox"! You have a great laugh too. We are praying that all of the doctors figure out the best way to fight what is bothering your gut.
Love,
Chrissy
Chrissy Oppegaard <beachbummommy@optonline.net>
Neptune City, NJ USA - Saturday, July 23, 2005 10:22 PM CDT

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Lucas,

I love the picture with you & the horse. It looks like you were having a lot of fun!

:)

Erin McGregor <Erin@EmmasFoundation.org>
Walnut Creek, CA - Friday, July 22, 2005 7:13 PM CDT

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Dear Lucas,
Uncle Stephen, Jonah and I are very excited about coming to your house for a sleepover this weekend. I know we will have lots of fun hanging out with all of you. We are especially proud to join you in the walk on Saturday. You are so loved and we can't wait to see you, sweetie.
Lots of love,

Auntie Cory (and hugs from Uncle Stephen & Jonah) <coryandstephen@aol.com>
Guttenberg, NJ - Wednesday, July 20, 2005 7:58 PM CDT

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What a great picture of Lucas and the horse. That's a keeper...maybe right on the frig! :)
Cindy Blanchard <cindy.blanchard@fmr.com>
Albany, NY - Wednesday, July 20, 2005 12:14 AM CDT

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Hi Breakfast Companion!

I was glad to hear that your visit to the hospital on Monday went off OK. I spoke to Grandma and she told me you had been a brave boy - as always. Let's hope that everything comes back negative from the tests and I will keep in touch with Grandma to hear all the latest news.

I hope the walk on Sunday is a GREAT SUCCESS and am sure you will be out there watching it all. The picture of you with the horse is spectacular! You're a very photogenic little boy you know. Always have been. That SMILE makes me so happy to see.

I'll be thinking of all those friends, and supporters of MLD walking for such a good cause and I wish everyone a happy time.

Lots of love to Mom, Dad and Abby, and keep some for yourself.

XXXXXXX


Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Wednesday, July 20, 2005 11:30 AM CDT

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Just checking in and Ilove love love the pictures! I was thinking of you all day today and I hope all went well!
Will call to get an update.
Big hugs to each of you and Abby ...you are a swimsuit model looking "smashing" as always!:)
Lucas- how did you manage to get the horse to snuggle up -were you hiding carrots in your mouth?
-Donna
D Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, July 18, 2005 10:31 PM CDT

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It was good to read the update. I hope all goes well and the testing provides a course. I am looking forward to beng in NJ for the walk. I will talk to you soon.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Sunday, July 17, 2005 7:23 PM CDT

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Thanks for the update on Lucas.It's nice to hear that even through the difficulties there's still laughter. I hope you find some answers with this next round of tests.

Cindy (Max, Maddie and Sam's aunt)
Cindy Blanchard <cindy.blanchard@fmr.com>
Albany, NY - Friday, July 15, 2005 8:13 AM CDT

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Well, there you are! I'm so glad to hear that the mouth is better, but sad about the diarrhrea and night spasms. I'm not someone to give up and just accept such things, and I won't for Lucas. The prayers continue as I nag the Lord for all our MLD warriors. Keep up the great, great job of hitting the T ball and kicking the soccer ball - that totally made my day!
Carolyn Wyman <re_born@sbcglobal.net>
belding, MI Triumphant Trimper Trio Territory - Thursday, July 14, 2005 11:25 PM CDT

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I'm sorry it's been over a week since I've posted --- everything from a death in the family to my daughter moving (and all that babysitting I get to do that comes with that!).

Lucas, how is our sweet boy doing lately? Last we heard, you were getting treatment for a miserable tongue (I'm familiar with that, as I fought hard to keep my dad's mouth clean after his stroke), but otherwise things were looking better. I do hope you're doing as well or better. Praying for you and the cure that is sure to come!
Carolyn Wyman <re_born@sbcglobal.net>
belding, MI Triumphant Trimper Trio Territory - Tuesday, July 12, 2005 7:52 PM CDT

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Hey cutie,
I'm praying that your summer is providing lots of fun times.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Sunday, July 10, 2005 11:20 PM CDT

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Lucas, in just a few weeks, people from all over (me included) are coming your way, to Walk for Leukodystrophy. I can't wait to meet you and Abby and your mom and dad - in person. It will be so nice!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Friday, July 8, 2005 10:14 PM CDT

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Coming by to check-in. I haven't been by in a couple of weeks but always think of all of you. The flight is booked, so I will be coming up Friday and be ready to walk Saturday morning. I am excited now and looking forward to seeing you. Lots of love....
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Wednesday, July 6, 2005 1:48 PM CDT

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Alicia , John, Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Tuesday, July 5, 2005 3:17 AM CDT

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Happy Return-to-school Day tomorrow, Lucas! Praying for you, sweet boy!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI Triumphant Trimper Trio Territory - Monday, July 4, 2005 12:24 AM CDT

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I, too, would like to know how to sponsor Lucas.
Dottie Purcell <dpdotsie@aol.com>
Oakhurst, N.J. USA - Monday, June 27, 2005 9:06 PM CDT

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Sam & Dave-
Can you explain how we sponser Lucas at the July 23 walk? I would love too but was confused...
Donna
DAS <mitchells_world@yahoo.com>
- Monday, June 27, 2005 8:48 PM CDT

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Was just thinking of you guys and thought I would "pop in" and say "hello"!!! Can't wait to see you again!
High fives, thumbs up and all that stuff-
Donna & Buddy Mitchell
Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, June 19, 2005 7:24 PM CDT

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I'm happy to read that things are moving in the right direction. Lucas, you are one tough little boy. I hope your family has a fantastic summer!
Cindy (Max, Maddie and Sam's aunt)
Albany, NY - Monday, June 13, 2005 8:49 AM CDT

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I just love the family picture... Sending love & prayers your way, everyday.
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Sunday, June 12, 2005 8:10 PM CDT

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Oh, Lucas! I was so very happy to read such a positive report about all the good changes - the skin, scalp, spasms, school, summer plans! May the Lord continue to bless you with recovery, comfort, and hope. I'm so very blessed to pray for a fellow shrimp lover - and every time I eat it, I pray for you, that you will be able to eat shrimp again! Such simple pleasures should not be so hard to achieve. I love you, Lucas, and I'll be praying about the Walk in July. God bless you, sweet Lucas. And may Abbie's summer be better than okay, in Jesus' sweet name.
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI Triumphant Trimper Trio Territory - Saturday, June 11, 2005 7:11 PM CDT

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Hi Lucas

Great to hear that you are doing much better and that your skin is clearing up.

We are delighted that you have been to school regularly recently and that you are much happier.

Keep that wonderful smile it crosses the Ocean.

Love from across the pond.

Auntie Mel and Ian
Ian and Mel; Russell <ian.russell16@btopenworld.com>
LONDON, UK - Saturday, June 11, 2005 4:43 AM CDT

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Hi Breakfast Companion!

It's so good to read that you're feeling much better and enjoying school and that you've only missed 2 days these past weeks. I do hope that you continue to keep up such good progress and now that the summer is here you will enjoy some nice days out and about with Mom, Dad and Abby, providing it isn't too hot of course. Mr Sun doesn't always agree with everyone. Grandma always talks about you and Abby so I did know that you have been progressing well now that your skin complaint seems so much better. Keep up the good work and I shall look forward to hearing how you have been making out.

You're such a BRAVE BOY and such an inspiration to everyone. I will be speaking to Grandma very shortly so will hear all the latest.

Lots of love as always to you, Mom, Dad and Abby, and not forgetting Lilo and Stitch!


Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Friday, June 10, 2005 11:40 AM CDT

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I hope the walk goes great. I am not sure yet if I can make it. I will be there in spirit.... Lucas looks great. I am glad he was able to celebrate another birthday and be doing better.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Wednesday, June 1, 2005 4:46 PM CDT

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Hi Lucas,

Emma likes the Japanese hibachi restaurants, too. That is our special place to go as a family. :) The girls also love the shrimp! Keep up the good work. I know you're working hard.


Erin McGregor www.caringbridge.org/CA/McGregorMLD <Erin@EmmasFoundation.org>
Walnut Creek, CA - Monday, May 23, 2005 10:18 PM CDT

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Lucas, I lost your link when my computer crashed three crashes ago, so that spurred me on to get a new one this coming week - so no more wondering how "my" wonderful kids are doing! I finally found your link in an old email - yes! I'm so very, very happy to see how well you are doing!!!! And Happy Birthday a little late - I'm sure from that smile of yours that it surely was a good one! Tears of joy seeing that wonderful pic on the main page, and even more on the picture page!

God bless you, my dear, sweet Lucas, with His Shalom! Still praying that the cure will come this year - you need to be a doctor, sir. In church today, I have never heard the group pray so fervently for a cure before - it made my heart swell with joy that it WILL happen, and soon!

"Oh, Lord, quickly, please!"
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country - Sunday, May 22, 2005 3:34 PM CDT

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Your smiley face made me smile right back! I'm so glad your birthday was wonderful.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Saturday, May 21, 2005 10:01 PM CDT

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I love the new pic on the home page! It looks like Lucas had a fabulous birthday - he sure deserves it! We will see you in July for the MLD Walk!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Saturday, May 21, 2005 9:42 PM CDT

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happy b-day lucas.AWESOME TV.You are always in our thoughts and prayer's.Love alway's the Tierney's
Chris Tierney <christtierney@aol.com>
Rumson, NJ - Saturday, May 21, 2005 8:19 AM CDT

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Hi Lucas!
What a beautiful day to have a party. We had such a nice time celebrating your birthday with you. Sorry we had to leave so early and miss the "Happy Birthday" song. We will come again very soon and spend the whole day (if you can stand having us for that long!!!).
We love you (and of course Abby, Mum & Dad too). And let's not forget Lilo and Stitch!!
Lots of love and as Jonah says "We love you millions and millions!"

Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
- Saturday, May 14, 2005 4:23 PM CDT

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LUKIE

HAPPY BIRTHDAY TO YOU !!!!

Keep smiling.

To Dave and Sam glad you are getting some well earned rest and Abby has had a great time.

Be well.

Love always

From Auntie Zelma,Auntie Mel and Uncle Ian

Dave :- Manchester United owned by an American???????




MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Saturday, May 14, 2005 4:03 AM CDT

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Happy Birthday, Lucas!!!!! I hope the day is filled with smiles and happiness for you. I was drawn to check on you today, and now I see why. I wouldn't have wanted to miss such a special occasion for such a wonderful boy!
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Friday, May 13, 2005 7:02 PM CDT

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Happy Birthday Lucas!! I hope you're having a great day!

Erin McGregor www.caringbridge.org/CA/McGregorMLD <Erin@EmmasFoundation.org>
Walnut Creek, CA - Friday, May 13, 2005 3:28 PM CDT

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Happy Birthday Lucas!
Looking forward to hugs and high fives on Saturday!
We love you!
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
- Thursday, May 12, 2005 10:31 PM CDT

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Happy Birthday Lucas!
Looking forward to hugs and high fives on Saturday!
We love you!
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Thursday, May 12, 2005 10:27 PM CDT

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We're glad to hear of the return of your Wheelchair, and your ability to spend a little time at the Boardwalk in Point Pleasant. Hopefully the warmer weather will make it possible to spend more time outdoors. Maybe even a chance to smell the summer flowers, and enjoy a shrimp basket picnic. We hope you will be rewarded for your brave struggle in all ways possible. Thinking of you.
Jeff & Rhonda <jgale@comcast.net>
Little Silver, N.J. - Wednesday, May 11, 2005 10:18 PM CDT

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Hi Lucas,
I'm glad to hear that your stroller is fixed. I hope you are doing well.

Erin McGregor www.caringbridge.org/ca/mcgregormld <Erin@EmmasFoundation.org>
Walnut Creek, CA - Wednesday, May 11, 2005 0:03 AM CDT

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We miss you and send our love.

Cory & Stephen Cowan <coryandstephen @aol.com>
- Tuesday, May 10, 2005 9:18 PM CDT

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Just checking in and letting you know we think of you often!
Donna & Collin www2.caringbridge.org/ia/collin <ldvolz@msn.com>
Earlham, - Wednesday, April 27, 2005 10:28 PM CDT

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Coming by to say HI. Lucas you look wonderful with your sister. I just read that your having a walk. Like Trish said the walk in Allen was great. Just want you to all know I am thinking of you.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Wednesday, April 27, 2005 7:51 PM CDT

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The TV is awesome, Lucas! And I know the hot tub will be too. The Walk in Allen was wonderful -- sure wish you could have been there! July 23 is the date for the one in New Jersey, so maybe you can make that one!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Tuesday, April 26, 2005 10:42 AM CDT

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Lucas,

Not only do I LOVE the TV but I also LOVE Totally Spies!

Keep kicking MLD in the big ole butt!
Jane Trimper <jatrimper@cms.maisd.com>
Stanton, MI - Monday, April 25, 2005 6:19 PM CDT

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Hi Breakfast Companion!

I have just seen the lovely photographs of you, Abby, Mom and Dad and, of course, the cats. You look so much better now and Uncle Eric and I are so glad that the skin infection seems to be clearing up. I spoke to Grandma yesterday and she said you enjoyed yourself looking for the matzo. And you found it so I hear!

Your new television is SO BIG. Can you still get into your room? All your favourite characters must ALL come alive now because you must feel so much more in the picture. Have fun with the new TV. You deserve every minute of enjoyment.

Grandma told me that Uncle Russell brought Olly to see you and he frightened Lilo and Stitch so much that one spent all the time on your bed and the other one hid in a cupboard. Poor Olly must have felt a bit put out by their unfriendly behaviour. He only wanted to have fun I'm sure.

I hope you continue to feel better than you have of recent times and that you enjoy your school days. I know that Abby is going to Disney soon and we hope she has a WONDERFUL WONDERFUL time. I'm sure she will look forward to telling you all about her vacation on her return. I hope she doesn't feel sick when she's on the the rides. I know I would, but then I'm just a silly old Auntie!

Keep up the SMILES. As usual I'll be speaking to Grandma in a day or two to hear how you are.

Lots and lots of love as always. You are constantly on our minds and we continue to marvel at your courage.
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Monday, April 25, 2005 10:49 AM CDT

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Lucas-
You look marvelous!! I am so glad you are able to get back to school and thank you for letting me borrow your mom tomorrow!!
Abby- Did you let mom braid your hair for in the picture it looks very wavy and beautiful!?! Way to go mom!

I hope you all relax and enjoy this weather and that there are many nice days ahead!!
Always thinking about each of you ...
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, April 24, 2005 6:53 PM CDT

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It's good to hear that Lucas is getting some relief since the terrible couple of weeks. And I bet it is a relief tax season is over. We had a great walk for MLD and raised about $10,000 for research. I felt good being able to do the walk in memory of Nathan and the Joiner boys. We had 265 walkers that day. Many more have heard the word Leukodystrophy now. That's a good thing going into the future. My thoughts are with you all.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Friday, April 22, 2005 6:02 PM CDT

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Sam and Dave

20/04/2005 LONDON ENGLAND

Sorry long time since we have posted.

Cory and Stephen are here with us at present in the UK and are flying back to you on Saturday.In fact today they are in Paris France for 2 days.

We took Cory Stephen and Jonah to Cadbury World the actual place where chocolate buttons are made the other day and we were chocced out. We then had dinner in an old English Inn in the Cotswolds near to Oxford.

As you know we are constantly thinking of you all.

As this story evolves of Lucas and his fighting of this disease, it is clear that you are wonderful dedicated parents, with excellent friends and family to support you.This in itself adds value to any medical care you are using as the love of you and your community in Lucas's plight will ensure there are more days of that great Lukie smile.

I hope his skin clears up soon.

Give Abby our love and tell her to have a great time in Walt Disney, she deserves it.

Love to you all as always.

Mel,Ian,Zelma,Cory,Stephen and Jonah.






Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, United Kingdom - Wednesday, April 20, 2005 1:21 AM CDT

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Hi Lucas, I'm so happy to hear that you're smiling a little again, but I so wish you were more comfortable. I need to pray harder for your skin to clear... in the meantime, what a fantastic job Mom & Dad are doing to find the right doctors to help you.

Samantha, I'm praying hard for a break for all of you!
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Saturday, April 16, 2005 9:34 PM CDT

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Lucas-
You looked marvelous yesterday!!I keep thinking about you for that smile you had just continues to warm my heart!! Can't wait to see you ...That TV is the "bomb-diggity" wait until Mitchell sees it tomorrow!!!!!!!:)
Yeah Dave!! Now it is time to sit back and take a deep breath!! Let us know when you are ready to work on the hot tub situation and of course, we would love to help you in anyway with the yard too if you need any help!
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, April 15, 2005 7:11 PM CDT

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Lucas, I am praying for your skin to clear up - Sensitive skin is the pits! Am so thankful that tax season is just about over, too! Now you can enjoy being with your whole family! Here's to happy days ahead!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Friday, April 15, 2005 3:44 PM CDT

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Lucas-
I hear you and I are so much alike ...we both know what is best when it comes to TV time!! I can't wait to see it! Let me know if anything works with your parents to keep it on longer for I haven't figured that one out yet with mine!!!!:) I can't wait to see you again!
-Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, April 11, 2005 7:28 PM CDT

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I've been on vacation in SC and NC and was praying "blindly" for all the kids. I'm so sorry Lucas still has so many difficulties, which I also feel do come from all the meds. Poor kid = but what a strong fighter! How do we ever explain such courage in such a young boy? God must surely give him the fortitude he needs to keep fighting. Way to go, Lucas!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Wednesday, April 6, 2005 10:51 PM CDT

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((HUGS))
Bob, Donna, & Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, April 6, 2005 8:46 PM CDT

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Hi Lucas! (And Samantha, Dave, and Abby, too!) Just checking in....we currently have 258 people signed up for the "One Step Closer" Walk for Leukodystrophy in Allen, TX, this weekend! We're going to be walking and thinking of you!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Wednesday, April 6, 2005 5:52 PM CDT

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Hi Lucas,

I haven't stopped by the site in a while since we've been moving. I just wanted to say hello. I hope that your pain lessens and the doctors can get things under control. Enjoy that new TV!

www.caringbridge.org/CA/McGregorMLD

Erin McGregor <Erin@EmmasFoundation.org>
Walnut Creek, CA - Tuesday, April 5, 2005 6:59 PM CDT

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Dear Lucas,
We continue to check on you and send our prayers and good energy to you and your family. Wishing you Shalom on Passover and the Easter season.
Blessings and Love,
Robin Bonney and Family <rgbonney@suscom-maine.net>
Freeport, Me - Saturday, April 2, 2005 5:55 AM CST

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Just checking in.... My heart is with you. I am coming up on Nathan being gone for 2 years. It's difficult to say the least but I am busy with State Bowling finals and the "One Step Closer" Walk for Leukodystophy in Allen. I will walk for Lucas too.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com 214-477-2724; 972-396-1048>
Allen, TX - Wednesday, March 30, 2005 3:21 PM CST

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Checking in...tried to call a little while ago. Left a message but would love to see you guys. I hope all is well...call when you can.
Hugs and prayers-Donna
D.Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, March 30, 2005 2:05 PM CST

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Well Lucas, I just missed seeing you at CHOP (I'd rather see you at home anyday, anyway!). I wish you were feeling better, and will just continue to pray pray pray. Much love to you & your family.
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Monday, March 28, 2005 10:01 PM CST

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You are never far from our thoughts & prayers. We send love & admiration to all of you for your incredible bravery.
Bill & Elaine Cannan <bcnco@optonline.net>
- Monday, March 28, 2005 9:52 AM CST

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JUST WANTED TO WISH YOU ALL A VERY HAPPY EASTER AND OUR THOUGHTS AND PRAYERS WILL ALWAYS BE WITH LUCAS.I ADMIRE YOUR COURAGE AND STRENGTH .IF THERE IS ANYTHING THAT I CAN EVER DO PLEASE DONT HESITATE TO CALL ANYTIME ANY DAY...LOVE ALWAYS THE TIERNEY'S
CHRIS TIERNEY <CHRISTTIERNEY@AOL.COM>
RUMSON, NJ USA - Sunday, March 27, 2005 12:56 AM CST

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""Hoppy" Easter" !!
Glad your home- can't wait to visit!!
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, March 27, 2005 9:27 AM CST

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Samantha, Dave, Abby and Lucas,
I am so glad that Lucas is home, and calm. I hope you are getting some well-deserved rest. Your entry is beautiful....and so truthful! Today IS all that matters.

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Saturday, March 26, 2005 10:29 AM CST

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Checking to see if Lucas is home yet. I'm so sorry that things are so rough now, on top of all the day to day issues. Lucas, you have so many people praying for you, and we trust that the Lord is working in you in ways we cannot understand. I do hope that your time at CHOP is productive for you and that the Lord will use your stay to address many of the issues that make you so uncomfortable. God bless you, sweet Lucas! Shalom on this eve of Purim and Good Friday, my friend. Both holidays remind us that out of the darkness - great light and joy!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Thursday, March 24, 2005 8:46 PM CST

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My thoughts and prayers are with Lucas and the family. Sorry to hear about his recent hospital stay. Hopefully it won't be too long.
Cindy (Max, Maddie and Sam's aunt)
Albany, NY - Thursday, March 24, 2005 8:29 AM CST

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Hi All,
Had a great time visiting with you last Friday.
Hope all goes well at CHOP and looking forward to hearing that you are back home soon.
We love you!

Auntie Cory, Uncle Stephen, Auntie Zelma & Gonah David <coryandstephen@aol.com>
Guttenberg, NJ - Wednesday, March 23, 2005 7:01 PM CST

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Hi, I have been reading your site for a while now and you are such terrefic parents to Lucas. I hope he is out of the hospital and feeling better before you know it. You should feel so good about the wonderful job you are doing taking care of your sweet boy. Best wishes and prayers, Debbie
Debbie <couture6@aol.com>
Dale City, Va USA - Wednesday, March 23, 2005 6:59 PM CST

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Praying for you today!!

Love,
Trish


Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Wednesday, March 23, 2005 10:36 AM CST

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So sorry to hear of Lucas's admission. Please know you are in thoughts and prayers.

Love,

Robin Bonney <rgbonney@suscom-maine.net>
Freeport, Me USA - Wednesday, March 23, 2005 1:14 AM CST

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Hi guys-
I had a weird feeling tonight and went to the computer as soon as we walked in! UGH!! If you guys need any help at all with anything- we are all on antibiotics and fever free here now and at your total disposal. I am open this weekend and I will have chunks of time in my days next week with some of my clients being on spring break. JUST CALL...
Sending gigantic hugs to each of you (grandma & grandpa too). Lucas-rest my little man, let your body heal and your mind relax so that you can get some good sleep-We love you guys!!
Donna

Bobby, Donna & Mitchell Anderson-Sweeney <mitchells_world @yahoo.com>
Eatontown, NJ - Tuesday, March 22, 2005 9:38 PM CST

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Always checking and it was good to see the updates. I am hopeful that the antibiotic gets rid of his stomach problem. I will check with Trish at the Stennis Foundation on the walks. It is my goal to try to make them all. I will be at the one in Allen and will be walking in honor of all our children. Lucas will be on my mind April 9th along with my own boys...

Angel Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbock, TX USA - Tuesday, March 22, 2005 9:01 PM CST

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Hi Breakfast Companion!

It's been a while since I last wrote to you, but I am fully up to date with your progress, because I speak with Grandma several times a week and ALWAYS ask how you are inbetween the updates. I know you are going through a bad time with your skin rashes but you're such a brave boy that am sure once the proper ointments kick in you will feel far more comfortable.

What a wonderful present you will be receiving shortly from "Make a Wish" - a Plasma TV! All your cartoons and DVD's will come alive on such a big screen. Let's hope you get it very soon and I will be waiting to hear from Grandma how you are enjoying it.

Keep smiling and stay brave. You're a real fighter and I've nothing but admiration for you.

Lots of love and kisses as always.


Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Monday, March 21, 2005 10:38 AM CST

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A new plasma TV! What a fabulous idea! I'm so happy you're getting it. Keep doing good, ok Lucas?

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Friday, March 11, 2005 10:33 PM CST

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Miss seeing you but check in all the time! I think it is really cool to see you on the computer!!!!!! Can't wait until the next time we can hang out!!!
Buddy Mitchell

Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, March 11, 2005 10:16 PM CST

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Well....It looks as if I have been checking up on to many of Tucker's friends, that I can't even remember whose site I am on!!! Call me CRAZY!! So sorry, but still VERY VERY GLAD Lucas is doing good! I think we all need some warm weather! Much love and prayers sent your way!
www.caringbridge.org/tn/tuckerstrailers
Angela Wells <armadison@hotmail.com>
Paris, TN 382424 - Thursday, March 10, 2005 11:32 AM CST

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Nothing Helps Like Hope

Hope is a wonderful gift from God, a source of strength and courage in the face of life's harshest trials.
When we are trapped in a tunnel of misery,
hope points to the light at the end.
When we are overworked and exhausted,
hope gives us fresh energy.
When we are discouraged, hope lifts our spirits.
When we are tempted to quit, hope keeps us going.
When we stuggle with a crippling disease or a lingering illness, hope helps us persevere beyond the pain.
When we fear the worst,
hope brings reminders that God is still in control.
When we are forced to sit back and wait,
hope gives us patience to trust.

Put simply, when life hurts and dreams fade,
nothing helps like hope.

Thinking of you Dave,Sam, Abby.
Praying for Lucas with hope in my heart.

Love, Sue
Susan Stillo Wilkins <swilkins@ptd.net>
Stroudsburg, PA USA - Wednesday, March 9, 2005 9:31 PM CST

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I am so happy to hear how GREAT Emma is doing!!! Keep up the good work! www.caringbridge.org/tn/tuckerstrailers
Angela Wells <armadison@hotmail.com>
Paris, TN - Tuesday, March 8, 2005 11:48 AM CST

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Hi Lucas! Just checking in on you today! I hope today is a good one!

Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Tuesday, March 8, 2005 11:05 AM CST

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Thinking about you and hoping things are getting better.
Michele Tomaino <micheletrn@aol.com>
Toms River, NJ USA - Sunday, March 6, 2005 7:58 PM CST

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Hi Guys!
Auntie Zelma will be here tomorrow and we want to plan a playdate with you. We'll call you in a few days to set something up. We miss you!
Lots and lots of love,
Auntie Cory, Uncle Stephen, & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Sunday, March 6, 2005 6:02 AM CST

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Hi all. Just checking and saying hello. Think of you guys often. Summer will be here soon!
Jeff Trimper <jtrimper@cms.maisd.com>
Stanton, MI - Thursday, March 3, 2005 7:19 PM CST

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Hi Luke, You are one sweet little guy. We will be praying for you.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Tuesday, March 1, 2005 11:51 PM CST

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Checking in and missing hanging out! As soon as we are all well, we will make it! You are first on the list!
High fives-
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, February 27, 2005 5:12 PM CST

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Hi Lucas and family,
We are Tucker's (from Tucker's Trailers), aunt and uncle from Memphis, TN. We saw your comments on Tucker's guestbook, so we decided to check in and read Lucas' story. We will be praying for Lucas and the others we have learned of with MLD. Hope you continue to see progress in Lucas and receive strength and hope from the Lord. Lucas and his sister both have such sweet smiles...may they continue.
Sincerely,
Joy and Jobe Madison
Joy and Jobe Madison <joymadison@midsouth.rr.com>
Memphis, TN USA - Sunday, February 27, 2005 4:32 PM CST

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Hi Lucas and family,
We are Tucker's (from Tucker's Trailers), aunt and uncle from Memphis, TN. We saw your comments on Tucker's guestbook, so we wanted to check in and read Lucas' story. We will be praying for Lucas and the others we have learned of with MLD. Hope you continue to see progress in Lucas and receive strength and hope from the Lord. Lucas and his sister both have such sweet smiles...may they continue.
Sincerely,
Joy and Jobe Madison
Joy and Jobe Madison <joymadison@midsouth.rr.com>
Memphis, TN USA - Sunday, February 27, 2005 4:32 PM CST

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Lucas, it sounds like things are going okay, but we want GREAT, so we will pray harder about that! I'm sorry you still have reflux and choking - maybe when they do the Baclofen again, they can do a quick job on your sphincter, to keep your stomach closed a little? I so want to see you free of that pain!

I'm sorry that you can't use the Neurontin - it worked so well for me.

God bless you, sweet Lucas, with peaceful nights and joyous days. He is able, He is willing, and He is awesome!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Sunday, February 27, 2005 11:48 AM CST

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Hi! Just stopping in to see how Lucas is doing. It sounds like he's doing better - I'm so glad to hear it!
Love,
Trish

Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX USA - Thursday, February 24, 2005 10:18 PM CST

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It's good to hear that Lucas is getting some relief with the change in meds. Nathan took neurotin (while in Minnesota) and it caused hallucinations, not sure if it will affect Lucas in the same way with the age difference in onset but thought I would let you know... Lots of positive thoughts from Texas.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Tuesday, February 22, 2005 11:03 AM CST

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Eating shrimp (which I do often!) always reminds me to pray for Lucas, so he got it big time today! ;) How I long to see you be that doctor one day, Big Guy. Praying all the time for the fellows at Duke, that they find the cure!!!! God bless you, sweet Lucas!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Sunday, February 20, 2005 8:15 PM CST

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I am just simply thrilled to know Lucas is smiling and laughing. Truly thrilled! Every joy needs to be celebrated, thank you God for relief for Lucas! And, Samantha, any night in your own bed is a good night, right?! So happy to hear some good news and will continue to pray and pray for your sweet family.
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Friday, February 18, 2005 5:21 PM CST

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Hello Sam, Dave, Abby and Lucas,
While my class has not been able to email you this year, we have certainly not forgotten our wonderful Viscomi Family!!
What great Valentine News, your update boosted our spirits.
Prayers and best wishes from Wescosville Elementary,
Eileen Crompton
Eileen Crompton <ecrom489@aol.com>
Wescosville, PA USA - Tuesday, February 15, 2005 8:28 AM CST

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What a wonderful update - Lucas, I'm so happy for you!!! It just kept getting better and better --- praise the Lord! I'm so very, very excited that the spasms are much less and that Prevacid seemed to do the trick, also (my husband won't take any of the other drugs for that - says they don't work). It's been a long time since we heard such good news from you, and we couldn't be happier! You made my day, Lucas! Thank you!

Sam, it means so much to me that you two are sleeping more - I can't tell you how much I've prayed about that one for you! I'm at that age, where sleep means a LOT, so I always worry when I hear that you are not sleeping well.

Thank You, God!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Monday, February 14, 2005 7:51 PM CST

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Hi Lucas!

Happy Valentine's Day from the Cowan Family!

We love you all so much and hope to see you very very soon.
Auntie Cory, Uncle Stephen & "Gonah" <coryandstephen@aol.com>
Guttenberg, NJ - Monday, February 14, 2005 12:49 AM CST

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Happy Valentine's Day Viscomi Family!!!
Donna, Bob, & Mitchell A-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, February 14, 2005 8:42 AM CST

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Hi guys-
Lucas,I was so delighted to hear you having such a great day on Friday-your laughter brought a gigantic smile to my face. I hope you enjoyed your "boy's day" with dad and that the rest of this weekend was as good as Friday started it! I will check in soon for I think of you so often.
Hugs to everyone and high fives to you-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, February 13, 2005 4:34 PM CST

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I have learned of Lucas and your family through the Tomaino children's website. I am truly amazed by the strenghth I have witnessed in families battling with MLD-I have no doubt the determination and support of these families will find a cure for each beautiful child afflicted. Your family is in my thoughts and prayers. May each day bring joy.
dana crewe <crewejohn@hotmail.com>
toms river, nj - Friday, February 11, 2005 8:57 AM CST

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Lucas, we are kindred spirits when it comes to shrimp! I think about you and your family all the time, and continue to pray and pray. Much love to you all.
Lisa Scott <leemarie66@aol.com>
Wall, NJ - Wednesday, February 9, 2005 10:40 PM CST

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Shrimp for the Shrimpeater is a great thing even if you have to fish it out. It's coming up on two years since Nathan has been gone. It's hard to believe it's been that long and some 14 months since our boys were initiated into this MLD journey. Sometimes it's seems forever ago. April 9th in Allen I am doing a Walk for MLD to raise money with the Stennis Foundation for MLD. (http://www.stennisfoundation.org) I have done this walk twice in Amarillo, TX but decided to do one in Nathan's memory as well as in memory of the Trevor and Ross Joiner. The high school is involved which is nice since Nathan would be a senior this year. I am hoping for lots of money to be raised so that kids don't have to go through what Nathan did or what Lucas is going through.
I just want you to know that in doing this walk I think not only of Nathan but Lucas and others I have met along the way. I guess I feel closer to Lucas because we got to spend time together. I remember hunting for hot wheels and searching for Hu-Gi-Oh cards and stuff. And Lucas's contagious smile. I think of his suffering and it breaks my heart. I remember Nathan saying, "Mom, no one should have to live through something so horrible. Even with all the preparation and being told how bad it was gonna be, I could have never prepared myself." And I remember him asking me that when he was well or gone, could I spend time doing something so that others didn't have to go through this. So I guess the walk is my something. Tell Lucas that Rhonda and Nathan say HI.....and haven't forgotten him.
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen , TX - Monday, February 7, 2005 4:46 PM CST

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Wishing you a few sips of warm tea and a turn for the better. Glad to hear that the family was able to share a Shiki experience and that Lucas is now installed as the official family shrimp taster. May the spring bring us all rebirth and good fortune.
Jeff & Rhonda <jgale@comcast.net>
- Sunday, February 6, 2005 2:17 PM CST

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I don't often sign, but I always read. So glad you got to the steakhouse, Lucas! I pray for you and your family to get some relief so you can have some more joyous moments. You are a beautiful boy!
Love,
Robin Bonney <rgbonney@suscom-maine.net>
Freeport, Me - Friday, February 4, 2005 6:19 AM CST

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Sam, I had no feeling in my right leg below the knee (from the cancer, the broken hip and knee, and the staph infection)- just pain inside when I tried to move it. Neurontin was like a miracle for me - I got my feeling back and never lost it again. I hope it works for Lucas as well as it did me!

Lucas, I would have bit that shrimp, too - I can't get enough of them! Being raised on the ocean does that to you! Praying that they find the cause and relief for your spasms soon. Don't give up! I know you won't.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Thursday, February 3, 2005 7:07 PM CST

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Thanks for the update. I'm glad you are able to get Lucus out to his favorite places periodically. I bet he really enjoyed that shrimp. My thoughts and prayers are with you for continued healing and strength.
Cindy (Max, Maddie and Sam's aunt)
Albany, NY - Thursday, February 3, 2005 8:09 AM CST

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Hi guys-
Just checking in...
and sending giant hugs!!!
-Donna

D.Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, February 1, 2005 6:53 PM CST

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My son Tucker Wells was diagnosed with MLD of August of this past year. I am just now learning about the transplant and have my questions. You are a beautiful child, and I pray for God's healing hands on you, and to your parents, I pray for their continuing strength. Tucker's website is caringbridge.org/tn/tuckerstrailers, please visit us there. :)
Angela Wells <armadison@hotmail.com>
Paris, TN - Monday, January 31, 2005 3:21 PM CST

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Thinking of you always.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, January 31, 2005 8:56 AM CST

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Lucas, I couldn't help but smile about Larry the Lobster. You and those blue eyes could talk anybody into just about anything. I continue to pray for you, always will.

Samantha, it has been a busy month on this end. But I'm free whenever you need me...even if just for tea & talk. I'll email you to set-up. Reading your entry today, I'm heartbroken for you & Dave. And, of course, for Lucas and Abby, too. Please remember that Lucas feels comfortable and loved no matter what he is doing (or not doing) because of YOU. Your strength and courage in the everyday is more than admirable and teaches your children (and many others like me) so much more than anything else ever will.

In friendship & faith,
Anthony, Matt & Laura Grace's Aunt Lisa Scott <leemarie66@aol.com>
Wall, NJ - Friday, January 28, 2005 10:32 PM CST

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Lucas,Abby,Dave and Sam

Keep smiling and fighting for Lukie.

Great news for Abby we have also been to Walt Disney World Florida.

In fact you may remember Sam and Dave we ended up sitting next to you at London's Heathrow Airport in 1990 by act of fate.You were returning to New York from your honeymoon and we were going to Florida.

Coincidence or what??

Although we are far away we are very near in thought.

Hope to see you all again one day soon.

Good luck to you all.

Mel and Ian

Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, United Kingdom - Friday, January 28, 2005 2:25 AM CST

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Checking constantly and praying for you. I hope that Lucas finds some relief and the same for you. I know those moans and grunts that you describe so well and it breaks my heart. I also know how hard it is to see other kids and parents doing things that were once on our own lengthy to-do list. Sorry that I am not much comfort to you, but I wanted you to know that you are not alone. Even at times that it feels that you are. Call/write or email if you wish to talk. I am always available and would love to hear from you.

Angel Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbock, TX USA - Monday, January 24, 2005 7:11 PM CST

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Hi guys-
Checking in to see how your winter day is going? Mitchell took 2 steps out the door turned around and went back inside!! Was not interested in being outside when there is a nice warm house available!!
Hang in there & stay warm as always...if you need anything, don't even hesitate for a second to ask!!
Donna <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, January 23, 2005 9:36 PM CST

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Hi Luke

So glad to hear that you are feeling a little better and got to come home. Being home is always the best medicine. Julia and I had the stomache bug 2 weeks ago and it sure does stink. She threw up in my slippers. It wouldn't have been that bad execpt I just got them for Christmas. Yuck!!! Say Hi to Abby and Mom & Dad for us.

Love, Kathleen
Kathleen Wilson <kmwilson732@aol.com>
Middletown, NJ - Saturday, January 22, 2005 12:37 AM CST

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Hi guys,

Keep strong, glad Lukie is home.

We are all thinking of you on this side of the pond

all our love

Auntie Mel, Auntie Zelma and Uncle Ian
melanie russell <ian.russell16@btopenworld.com>
london, United Kingdom - Friday, January 21, 2005 2:54 AM CST

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Hello-
Very haapy to hear you are home!!I just got home from work and this made a very long day so much better!! I am working an odd day tomorrow so I will call when I get home but...if you need anything before then you know!!!ANYTIME!!
Hugs and high fives-
Donna
Donna Anderson-Sweeney@hotmail.com <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, January 20, 2005 8:20 PM CST

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So glad you're home and that Lucas is a little better. Electrolytes are so very, very important, as I learned the hard way. I lost my mom and nearly my own life from electrolyte imbalance. I pray that Lucas will be free of trouble very soon. God bless.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Thursday, January 20, 2005 3:36 PM CST

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Hi Breakfast Companion!

So glad that you're now back home. Keep up the fighting spirit and don't let the nasty bug get the better of you. Always thinking of you and talking to Grandma to get the latest news, and will continue to do so.

Lots of love and tons and tons of KISSES.
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Thursday, January 20, 2005 2:22 PM CST

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Hi,

We're so glad you're back because "there's no place like home."

Lots of kisses and hugs from,
Cory, Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Wednesday, January 19, 2005 9:52 PM CST

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Hi,

Just a quick note to let you know we are thinking of you as always and sending lots and lots of love.

Cory & Stephen <coryandstephen@aol.com>
Guttenberg, NJ - Tuesday, January 18, 2005 10:22 PM CST

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Hey guys, just thinking about you and Luke. Let me know if you need anything.

Jon, Sherrie, and Mokie
Jon Andrus <andruspt@verizon.net>
Ocean, NJ - Tuesday, January 18, 2005 7:33 PM CST

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I will say a prayer that the Doctors can help Lucas feel better soon. If there is anything I can do don't hesitate to call.
Kathleen Wilson <kmwilson732@aol.com>
Middletown, NJ USA - Sunday, January 16, 2005 7:19 PM CST

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Oh, Lucas, we are praying here that all this is resolved quickly. My heart just does flip-flops when I read about your ongoing issues - how I hope that they will find a solution to your spasms and other issues soon. You may be a complicated case, but your wonderful smile and engaging personality keeps everyone rooting for you, and this just makes us more determined to go for 100%. God bless you, Lucas, with a doctor who will care for you like you were her/his own child.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI - Sunday, January 16, 2005 2:57 PM CST

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Hey guys-
Call me if you need anything -anytime!! Lucas, feel better so we can hang out!!
Abigail, you were an awesome helper today~don't worry I won't tell mom :)!!
Samantha-rest and if you need company ~I am here for you as always!!
Dave- we are around tomorrow so if you need anything don't hesitate~we hope you have a happy birthday and that your wishes are fullfilled!!
We think the Viscomi family is truly the best!! Hang in there guys!
Bob, Donna, & Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, January 15, 2005 9:39 PM CST

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A very happy new year to you all.

May 2005 bring you much happiness and better times.

We think of you daily.

Love Mel and Ian Russell
Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, United Kingdom - Wednesday, January 12, 2005 0:57 AM CST

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Hi Lucas!

I like all of your new pictures. I hope you had a fun time at the basketball game. Did you end up watching your DVD player, too? What is your favorite movie?

:)
Erin McGregor www.caringbridge.org/ca/mcgregormld <Erin@EmmasFoundation.org>
Martinez, CA - Sunday, January 9, 2005 12:41 AM CST

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Hi Guys!
Had a great time during our visit last Sunday. Jonah loves his Dora Legos and plays with them every day! Thank you so much!
We love you "millions and millions!"
Auntie Cory, Uncle Stephen & "Gonah" <coryandstephen@aol.com>
Guttenberg, NJ - Friday, January 7, 2005 11:05 PM CST

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Hi Lucas! I wish I had longer than 2 minutes to see you before that last ER trip of yours, but hooray that everything was ok!!

Thank you for lending your old carseat to Anthony. You sure are growing! Keep hanging in there through all the nonsense...it's all good for you even though it sometimes may not seem like it.

Samantha: What a beautiful family photo. God bless you all. You're all always in my prayers.
Anthony's Aunt Lisa <leemarie66@aol.com>
Wall, NJ - Thursday, January 6, 2005 10:08 PM CST

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Lucas-
I am loving that cap!! You and Abigail look smashing and mom & dad don't look too bad either:)!! I hope you are getting more sleep and that we can come and hang out again. We had a great time playing with you & Abigail and really "dig" your "new words" system.
Stay warm and dry in this disgusting weather...
High fives, thumbs up & all that stuff-
Donna & Buddy Mitchell
D & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, January 6, 2005 6:00 PM CST

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Wow - it sure does sound like Lucas has had an eventful couples of weeks! Happy to hear that there is a doctor closer to your home. I'm sure those drives can get long.

We hope 2005 is full of health, happiness, hope, and love.

All the best from CA~
Emma & Family

Erin, Greg, Mallorie, Emma & Josie www.caringbridge.org/ca/mcgregormld <Family@EmmasFoundation.org>
Martinez, CA - Sunday, January 2, 2005 5:26 PM CST

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My prayers are with you all. I'm so glad you are going to keep seeing Dr. Mike. He is so smart and so good with the kids. Be hopeful about the serial casting and Botox...I've seen wonders done at Children's. As hard as it is to tell you this after reading your entries, stay strong and hopeful. Only our love for our children can sustain us through the exhaustion and emotional meltdowns.

Thank you for the loan of the car seat. We wouldn't be able to get Anthony home safely without it!

Michele Tomaino
caringbridge.org/nj/anthonyt
Toms River, NJ - Saturday, January 1, 2005 11:27 PM CST

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I check every day nearly, but I haven't signed lately. I pray that the spasms will end and that Lucas can enjoy life without pain and suffering. I pray that you will get the rest you need to help him. And I pray that Lucas will be totally, 100% healed of MLD. I'm so sorry that you wake to his pain. God bless you all.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Tuesday, December 28, 2004 8:53 PM CST

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Lucas and family,
We check in and read your updates often. Although we don't always sign the guestbook, you are in our prayers. Wishing you comfort and peace this holiday season.
The Bonney Family <rgbonney@suscom-maine.net>
Freeport, Me USA - Tuesday, December 28, 2004 6:41 PM CST

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I appreciate how difficult your time must be with your sweet son. I am thankful to read that you do appreciate the time. Because, the time WITHOUT your precious child is so very horrible, and more painful than ANYTHING you can imagine. I know you will enjoy the time you have with Lucas...please enjoy it! For, the time without a child you love more than your life is so totally UNBEARABLE.
Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com>
- Monday, December 27, 2004 6:54 PM CST

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Hi to the Viscomi family. We think of you often over here on Salem Lane and keep up with the news on Lucas. We shall keep all of you in our thoughts and prayers in the new year. We wish you all a happy new year.
The Hanko's
Marianne <hanko54@peoplepc.com>
- Monday, December 27, 2004 1:17 PM CST

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To all the Viscomi family.

Have a great Christmas and a happy and healthy New Year.

Keep up the fight in 2005 and keep smiling that wonderful smile Lucas.

With love to you all.

Auntie Mel and Uncle Ian
Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, United Kingdom - Thursday, December 23, 2004 0:57 AM CST

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Hello from Iowa! I continue to check on you often though I write rarely (my computer isn't cooperating). I wish I were there to help. May you all have a beautiful holiday.
Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Tuesday, December 21, 2004 11:45 AM CST

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Many thoughts and prayers to the entire family, especially during the holidays.
Anthony's Aunt Lisa <leemarie66@aol.com>
Wall, NJ - Monday, December 20, 2004 9:58 PM CST

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Hi Lucas,

Your dad is my accountant...I read the updates your Dad writes about you and I wanted to tell you that you are AWESOME DUDE! Keep up the good work. Also, your sister is very pretty and best wishes on her 7th year. Hugs to Mom and Dad too.
Anita Macaluso <anitamcaluso@comcast.net>
Monmouth Beach, NJ - Monday, December 20, 2004 8:37 PM CST

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Lucas

Read your latest report.

Keep up the good work and the laughter.

As ever you are an inspirational,courageous and wonderful young man.

We think of you daily.

Auntie Mel, Uncle Ian and Auntie Zelma.

Love and kisses from the eastern end of the great pond.


Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, uk - Wednesday, December 15, 2004 11:21 AM CST

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Always checking on you and thinking of you everyday. I, too, hope that Lucas finds more comfort everyday. These kids and what they face every minute of every day is amazing and they do it with such grace, style and dignity. What you have to remember is that you gave them the ability to do that.

Blessings to you.
Angel Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbock, TX USA - Monday, December 13, 2004 7:43 PM CST

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Hi Lucas-
I have wanted to call and find out how "boys weekend" went with Dad but I have lost my voice. Can you believe it ~it sounds like a giant toad climbed into my throat!!!
I tried to call Mitchell's school this morning and they could not hear me so I will probably have to fax over any important info!! I am on my way to work but wanted to check in and see how you are? Did the "girls" have a good weekend in NYC???
I hope school is going well!!!!!
Hugs, High Fives & all that stuff-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, December 9, 2004 7:41 AM CST

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Lucas,

Hello, it has been a while but I was just looking at the picture of you and our water balloon fight. I thought I send a message. I hope all is going well for you and your family and that you all have a great holiday season. Call us if you need anything.

Love, the Coopers
Brad, Bonnie and everyone at Cooper Rehab
Brad Cooper <Cooperrehab@aol.com>
Middletown, NJ - Wednesday, December 8, 2004 7:52 AM CST

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Dear Lucas,
Lucas I hope you are my friend and I like you who you are.
You are so very special and my class checks your website each week. If you get a chance to visit Wescosville again, we would like to see you soon.

Nicholas Tremmel From Mrs. Crompton's class <ecrom489@aol.com>
Wescosville, pa usa - Tuesday, December 7, 2004 1:33 PM CST

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Lucas

Stay strong and keep smiling our little hero.

You are always in our thoughts.

With Love from the land of warm ale and the home of soccer.

Auntie Mel, Uncle Ian and Auntie Zelma
Melanie and Ian Russell <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Tuesday, December 7, 2004 0:58 AM CST

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Hey there Lucas!
My names Brittany and I am Joels younger sister! I just wanted to let you know that my whole family is keeping you in there prayers and thinking about you! I hope everything goes well these next couple of weeks. Stay strong!
<3, britty
www.caringbridge.com/pa/marky
Brittany Ivory <bibyrose@hotmail.com>
Bethlehem, pa - Wednesday, December 1, 2004 3:03 PM CST

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Hi Lucas & Family~

We're checking in to say hello. We hope the procedure goes well at Mountainside. We're glad they fit you in for the botox, too. You deserve special attention!

Love from California~

www.caringbridge.org/ca/mcgregormld

Erin & Greg McGregor <Family@EmmasFoundation.org>
Martinez, CA - Tuesday, November 30, 2004 8:32 AM CST

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Brrrr...it is so cold outside!! I hope you are in full siwng with school again. Mitchell was not feeling well so the school called today. We just can't seem to get back on track so we can come hang out!! Very soon (I hope) we will get together and you and Mitchell can make some serious noise with your whistle competitions!!:)
Big Hugs to you and your family-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, November 29, 2004 7:29 PM CST

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HEY LUCAS!!!!!!!!! I have yet to meet you, unfortunatly, but i've heard alot about you from your crazy/goofy cousin Alicia..... You are a true fighter and an inspiration.... I can only imagine how many lives youve touched with that amazing smile of yours!..... My heart goes out to you and your family and you will remain in my prayers..... CHOP is the place to be, i'm sure we've passed eachother in the elevator many times.... My brother also has a page on here, its in "Pa" under "Marky".... You two are about the same age, and i know you would be buds..... Keep on rockin Lucas!.....
Joel Ivory <jivory84@hotmail.com>
Bethlehem, pa usa - Sunday, November 28, 2004 11:50 PM CST

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Hi Lucas! I hope Thanksgiving was fun and that you're feeling much better by now. I've been thinking a lot about you & of course praying for you everyday. Keep smiling that beautiful smile.
Anthony's Aunt Lisa <leemarie66@aol.com>
Wall, NJ - Sunday, November 28, 2004 10:37 PM CST

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hi lucas .I was thinking about you today at Chris's Hockey game i hope you and your family are doing well and we think of you often.You will always remain in our prayer's .Love The Tierney's
chris tierney <ctierney@knighttrading.com>
rumson , nj - Saturday, November 27, 2004 6:57 PM CST

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I like what I'm hearing about CHOP. Sounds like you've got a good fit with 'motivated' and 'aggressive' doctors.
There's so much to be thankful for this holiday season. Enjoy it!
Cindy (Max, Maddie & Sam's aunt)
Albany, NY - Wednesday, November 24, 2004 10:35 AM CST

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Everything in this update made me so happy for Lucas! Praise the Lord for CHOP and the answer to prayer that Lucas would get even better care than he was receiving. I'm especially happy to hear about their concern for the rarity of this disease - especially good for both Lucas and the Tomainos! God bless as you continue your 24/7 devotion to Lucas and Abby. We will reap if we do not faint.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Tuesday, November 23, 2004 4:02 PM CST

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Wow. 7 different hospitals. We hope you're back home safely and Lucas is doing well. Take care of yourselves. We're thinking about you & praying for you.

Love from California~

Emma & Family

Erin, Greg, Emma, Mallorie & Josie www.caringbridge.org/ca/mcgregormld <Family@EmmasFoundation.org>
Martinez, CA - Saturday, November 20, 2004 11:23 PM CST

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Checking in. It's good to see your update and hope you get to go home as planned. Thinking about you....
Rhonda Frachiseur (http://www.caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, November 18, 2004 8:44 PM CST

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It sounds like things are going in the right direction, finally! Of course, I know that you have been here before, but with the CHOP on the case, it seems that Lucas' greatest need - comfort - is their priority. I know you will all be glad to be under one roof again and that Lucas will be happier at home. Praying that this route will really, truly give Lucas the freedom from the spasms, especially. God bless you, Lucas!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI - Thursday, November 18, 2004 8:27 PM CST

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Just checking in to wish you a speedy return home! Love the picture!
Robin Bonney <rgbonney@suscom-maine.net>
freeport, me - Thursday, November 18, 2004 4:42 AM CST

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Hi Guys,

Just a short note to tell you all we are thinking of you in London. Please send our love to everyone

Auntie Mel, Auntie Zelma and Uncle Ian
melanie russell <ian.russell16@btopenworld.com>
london, england - Wednesday, November 17, 2004 8:29 AM CST

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Checking in, I will call Dad tonight..."Mom" if you need anything....well you know!!!!
HUGS-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, November 16, 2004 6:28 PM CST

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Hi Lucas! What a treat meeting you at the hospital yesterday! I have to say, between your gorgeous blue eyes and Anthony's, I don't know how anyone at CHOP can concentrate! Now you get well and give mom a hug for me. I'm still praying for you everyday.
Anthony's Aunt Lisa <leemarie66@aol.com>
Wall, NJ - Sunday, November 14, 2004 12:53 AM CST

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Hi guys, we just wanted to let you know we're thinking of Luke and the family. Let us know if you need anything. Tell Luke Mokie says hello!!

Love, Jon and Sherrie
Jon Andrus <andruspt@verizon.net>
Ocean, Nj - Sunday, November 14, 2004 8:41 AM CST

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Oh, Lucas! I take a little break and come home to find you in the hospital - but what a great hospital! God bless you as the Lord gives the doctors His knowledge and understanding to cope with this latest "bump in the road." May they be able to find the answers to ALL your needs, for you are certainly due a reprieve from this horrible disease. I love you, Mr Lucas!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Sunday, November 14, 2004 1:39 AM CST

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Hi guys-
Lucas-we were hoping to see you home this weekend but ...we can wait while you fight this nasty bacteria!!! We saw the Incredibles last night and all agree you have them "beat" when it comes to your super powers~your ability to "kick butt" far exceeds any super hero we know.
If your family needs anything, as always, don't think twice about asking!!!!!!!!!!
High fives, thumbs up & all that cool stuff-
Bobby (aka Mr Incredible:)), Donna & Buddy Mitchell
Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, November 13, 2004 2:07 PM CST

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It's good to see the update. I hope the bacterial infection clears quickly so that Lucas can be home again. Thinking about you often.
Rhonda Frachiseur (http://caringbridge.org/tx/nathan) <branwygrl@yahoo.com>
Allen, TX - Friday, November 12, 2004 11:44 PM CST

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Glad to hear you made it over the hump of a difficult week! We hope Lucas improves & that bacterial problem goes away quickly!

Love from CA~

Emma & Family
Erin, Greg, Emma, Mallorie & Josie www.caringbridge.org/ca/mcgregormld <Family@EmmasFoundation.org>
Martinez, CA - Friday, November 12, 2004 9:47 PM CST

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Thinking of you today -all day long!!
Hope everything went well and you got some posititve vibes.
Will call soon~ but thought I would check here first to see if you all posted!! Still "yucky" so we are staying far away until we are better!!
HUGS-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown , NJ - Tuesday, November 9, 2004 8:53 PM CST

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Hi Lucas, It's been awhile since I checked in on you. I am the one who has a granddaughter with an undiagnosed problem. I am the one who looks to you for hope. You are an incredible boy. My granddaughter is an incredible little girl. I too look at her lots of times and wonder why should any child go through anything like this. When I read your journal I just wish I could hug you like I get to hug our little "beanie". I may not check in everyday with your journal but I do think about you everyday. God Bless you and your family. Hang tough. God is good.
joanmarie <higgo40@aol.com>
englishtown, nj usa - Tuesday, November 9, 2004 5:35 PM CST

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Hi Lucas-
Mom & I have this nasty cold with green stuff-YUCK!!
Have you snuck any Kit Kats yet?
High fives-
Buddy Mitchell
M. Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, November 5, 2004 9:41 PM CST

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Good luck with your trip to CHOP. With their MLD experience, I'm sure they will have solutions for Lucas.
Cindy (Max, Maddie & Sam's aunt)
Albany, NY - Friday, November 5, 2004 8:29 AM CST

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I'll be praying about your trip to CHOP. Lucas deserves the best. I'm glad Lucas is sleeping 2 out of 3 - now on to 100%!

Lucas, your patience is just too amazing, downright heavenly. I come here everyday to pray and sit here amazed at your perseverance, dear boy. You are such a wonderful example to so many. I am praying that a new doctor will find what is needed to relieve the spasms. I think I told you before that when I had bone marrow cancer, the first oncologist gave me a drug I was allergic to and refused to take me off it. It caused full-body charlie horses all day long, especially when someone would walk in the room when I wasn't expecting them. It took me a total of a year to be free of them. I read about you and it reminds me of how terrible they were - and it makes me pray like crazy for you. I'm really glad I had them now, so I can understand. I love you, Lucas, and I'm praying that these spasms will be healed more than anything - because that was my prayer back then.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Thursday, November 4, 2004 9:10 PM CST

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I've been thinking about you and wanted to let you know. I got a Walk for MLD in Allen scheduled for April 9, 2005. I am working with the Stennis Foundation to put it together. I am very excited and hope we are able to raise alot of money for research. I will keep updates posted on Nathan's website but it's already out on the Stennis Foundation site too. For those readers interested: it's www.stennisfoundation.org I can't help Nathan but Nathan would expect that I do what I can for those that have to live with horrors MLD brings. It's like he said to me one day in Minnesota, "No one should have to go through this." My love to you and your family.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com 214-477-2724; 972-396-1048>
Allen, TX - Wednesday, November 3, 2004 10:46 AM CST

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Hope your two pumpkins had a great Halloween and got lots of good things to eat! Praying that you find a doctor who is worthy to take care of such a wonderful boy.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Triumphant Trimper Trio Country! - Monday, November 1, 2004 6:08 PM CST

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What a fun night...
High fives for Big scores on KitKats-
Buddy Mitchell <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, October 31, 2004 10:31 PM CST

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Lucas and Abby: You two kids look awesome in all the pictures....LOVE the pumpkins you have!! Glad that Dad's home safe and you're altogether again. Mom, you're a trooper....hang in there!
Love and Prayers Always,
The Cuttle Family <donna@cuttle.com>
Belding, MI USA - Friday, October 29, 2004 7:20 AM CDT

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Dear Lucas and Family,
We are friends of Anthony Ts and found your site through his. We have added your family to our prayers. Lucas, you are a very handsome boy and your sister is very cute! (I grew up in Shrewbury right across the tracks).
Blessings from Jackson,

Susan Masco and Family

Susan <jsmasco@optonline.net>
Jackson, NJ - Thursday, October 28, 2004 3:20 PM CDT

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Hi breakfast companion!

I just loved the new photographs of you and Abby and I know from Grandma you enjoyed Abby's 7th birthday party. It must have been great fun on the pumpkin farm and I hope you managed to get the BIGGEST pumpkin ever. I remember going with you both a few years ago to choose pumpkins and we all enjoyed ourselves so much on the hay ride tractors. But it was so cold and windy I thought I was going to turn into a snowman!

Uncle Eric and I will be coming to see you next week and we're looking forward to seeing your smiling face. I'm sure it must be good to have Dad home again after his trip and to hear what he did whilst he was away. I also had a long chat with Abby a little while ago and she told me all about her dancing and her soccer and school. And of course she talked a lot about you and how good you were. You're the best of pals and that's lovely to hear.

Keep smiling - you really are an inspiration to everyone and we admire your courage. Until next week then. Lots and lots of love as always.
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, UK - Wednesday, October 27, 2004 1:18 PM CDT

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Hi Lucas! I was just thinking of you and your family today. Abby and the girl scouts did a wonderful job selling cookies and cider. The pictures are great - I bet you love Halloween. Keep smiling "Luke" and have a happy day. Be positive, get to CHOP!! PS. Look for the lunar eclipse tonight. God Bless you all. :) The Langan's
Nancy Langan <lslangan@verizon.net>
Little Silver, NJ USA - Wednesday, October 27, 2004 9:25 AM CDT

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I LOVE the pictures!!!!Abigail & Lucas you look awesome! I just sat down from a crazy day at work and thought I would pop in to say Hi!!!
Have a great week-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, October 25, 2004 10:08 PM CDT

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Love the new pictures! Lucas and Abby, what sweet, wonderful faces! Laughter makes everything easier, and you are doing a great job keeping us smiling out here!

My guess is that Lucas likes autumn???? What a great kid!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Monday, October 25, 2004 6:59 PM CDT

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What a nice suprise to see your beautiful new picture, Lucas! You look so handsome! You keep fighting, I'll keep praying, as always.
Anthony's Aunt Lisa <leemarie66@aol.com>
Wall, NJ - Monday, October 25, 2004 11:46 AM CDT

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YEAH Daddy's home!!!!!
I was just checking in real quick (while balancing my check book & before the gymnastic meet)...we want to visit but, Mitch has some "bathroom issues" and I don't want to expose you to this since "IT" has been buzzing around town. I will call mom tonight (after the meet) to catch up and hopefully set up a visit SOON!!
Miss you-
Donna & Buddy Mitchell says "hello" too!
Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, October 23, 2004 1:03 PM CDT

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Oh dear you would expect the doctor to be fighting your corner.

Thank God Lucas has the support of wonderful parents,sister,grandparents,aunts and uncles and the wonderful people of Little Silver.

Keep fighting and do not give up.

Lucas your smile is infectious and your courage an inspiration.

From good Old London town.

Love Auntie Mel,Auntie Zelma and Uncle Ian
Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UK - Saturday, October 23, 2004 8:09 AM CDT

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Oh my dear, what a terrible awakening! But now you know that the problem is that MLD is an unnecessary mystery to this doctor and that it would be better to find another right away. (I had to change cancer doctors for that very reason myself.) I often cringe when I am praying for children who must leave the BMT units to begin dealing with the local medical community who know nothing of these things. We have lost children to their stupidity - 3 yr old Daryl here in Michigan just last month. He had C-diff and it went into his lower bowel and it was over just like that, because the doctors in Detroit just didn't care. So please know that we are praying that you can get to CHOP or another hospital that will meet Lucas' needs very, very quickly. I can't help but believe that what they aren't doing is in fact making Lucas miserable. God help this doctor to have a heart someday. Hopefully, he will never know the agony of a rare disease in his child.

Sorry - I fume sometimes when "my" CB kids don't get the breaks they should have because of heartlessness on the part of such people. God bless sweet Lucas with the best doctor in the world!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Friday, October 22, 2004 10:50 PM CDT

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Dear Lucas,
We are praying for you. Have a fun weekend.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Friday, October 22, 2004 10:07 PM CDT

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I have been thinking about you all alot lately.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Friday, October 22, 2004 3:50 PM CDT

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Hi guys-
Dave I hope you returned safely...I will give you all a "buzz" tommorrow but wanted to check in!!
Lucas-
I miss your great laugh and smile-I hear you have been pretty busy!! We would love to stop by for a visit-have you figured out a costume yet??
High fives, thumbs up & all that stuff-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, October 20, 2004 8:36 PM CDT

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Hi Lucas, I've been thinking a lot about you. Stay strong and keep smiling!
Anthony's Aunt Lisa <leemarie66@aol.com>
Wall, NJ USA - Sunday, October 17, 2004 7:09 AM CDT

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Hello from Iowa! I think of you often and worry about the load you are carrying, physically and mentally. For some reason I can't seem to write messages at home, only at the library. Hooray for public libraries with internet service. I wish I could be there to help you.
Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Wednesday, October 13, 2004 8:00 PM CDT

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Just checking in if you all need anything ....well you know!! Just got back in town and would love to visit!!
HUGS!!!

Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, October 11, 2004 10:05 PM CDT

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Hi Guys,

London calling

So sorry to hear the news re Trevor

Keep smiling guys, we are all so proud of you

Always thinking of you

Lots of Love

Auntie Mel/ Auntie Zelma/ Uncle Ian
melanie russell <melanie.russell@chartwelltravel.co.uk>
London , United Kingdom - Monday, October 11, 2004 3:33 AM CDT

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Hi Lucas!

We're just stopping by to say hello. We hope your pain lessens. :)

Lots of love from California~

Emma & Family

Greg, Erin, Emma, Mallorie & Josie www.caringbridge.org/ca/mcgregormld <Family@EmmasFoundation.org>
Martinez, CA - Sunday, October 10, 2004 9:51 PM CDT

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I'm devastated, too, over Trevor's passing - and Ross still haunts me. We have to stop these awful leukodystrophies very, very soon.

I remembered that today is Dad's day to leave on his mission trip - I assume everything went well! Hope all goes well while he is gone and that he has a safe, successful trip. Lucas, we are praying that the spasms totally end for you.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Saturday, October 9, 2004 10:42 PM CDT

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We always keep Lucas in our prayers and we will pray for Trevor and his family.
Godspeed,

The Glassmachers <dglassma@aol.com>
Little Silver, NJ USA - Friday, October 8, 2004 12:51 AM CDT

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Hi,
Thinking of you guys and sending all of our love.
I am so very sorry to hear the news about Trevor.
Will speak to you soon,
Cory <coryandstephen@aol.com>
Guttenberg, NJ - Thursday, October 7, 2004 10:27 PM CDT

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I too am saddened by yet another loss to MLD. I hope that the change in meds helps Lucas to be more comfortable. There really aren't too many words for all of this sometimes. I just wanted you to know I was thinking of you today.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, October 7, 2004 2:17 PM CDT

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Sam & Dave-
I am thinking of you...
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, October 5, 2004 9:52 PM CDT

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Hey there, Lucas! I just wanted to drop in and with a prayer that you'll have a good day today!!
Love and Prayers,
The Cuttle Family <donna@cuttle.com>
Belding, MI USA - Tuesday, October 5, 2004 5:32 AM CDT

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Thinking of you and all that you do.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, October 4, 2004 9:48 AM CDT

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Hi Lucas!
We had such a great time with you and the gang last weekend. Can't wait to see you again very soon. We love you!
Hope you enjoy the videos.
Lots of love,
Auntie Cory, Uncle Stephen, Auntie Zelma and Jonah David <coryandstephen@aol.com>
Guttenberg, NJ - Friday, October 1, 2004 8:40 PM CDT

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Wanted to check in before I called...
I am very glad you chose to go Dave. Thank you for sharing your memory of the day Lucas was diagnosed- Lucas is very brave with fighting this disease but you all are very brave with how you all have stepped up to the plate and done everything you can for him. Not only is Abby Lucas's best friend, you all are too for you bring him such happiness with all you do to make his moments joyful!
I think each of you guys are the "best" !!!!!!!!!!!!!!!
Donna
D.Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, September 25, 2004 8:16 PM CDT

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We'll continue to keep Lucas in prayer that his hip isn't so painful for him; prayers of strength for Mom and Dad and Abby for fighting this battle daily with Lucas. He's so lucky to have a family like you all! Prayers of safe travel for Dad; what an honorable man for his family to look up to. Happy Birthday, Abby! Hope you all have a good weekend!
Love and Prayers,
The Cuttle Family <donna@cuttle.com>
Belding, MI USA - Saturday, September 25, 2004 7:42 AM CDT

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I for one am always in favor of parents expressing their true feelings about the most devastating event in their lives, because then we know exactly how to pray. God loves specificity in prayer, so I sometimes feel frustrated in praying for parents in "living grief" who don't want us to think that caring for their child is a chore. We don't. But we very much want to pray for you and your child - to hold you all up to the Father. To Him, you are a child, also. He cares for you, and He doesn't want you to suffer, either. Please know that.

I feel very privileged to be praying for a family who gives and gives and gives again. Oct 9 is on my calendar, and you are in my heart. More importantly, you are in His. Thank You, God.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Saturday, September 25, 2004 0:01 AM CDT

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You are truly remarkable parents! Your love and selfless giving are an inspiration to all. You never whine and complain and cherish the good days as a beacon of hope for the cure. I treasure the gift of your friendship, and feel blessed to have you in my life. God Bless you and yours!
Pat Lang (www.caringbridge.com/page/maddigan) <patricia.lang@ge.com>
Chaska, Mn USA - Friday, September 24, 2004 3:36 PM CDT

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God Bless you Samantha. You are both adoring, loving, giving parents and role models to many! You never whine and complain, you accept the role with grace and cherish the good days as a beacon of hope that a cure will be found! I believe it will. God Bless you and yours!
Pat Lang (www.caringbridge.com/page/maddigan) <patricia.lang@ge.com>
Chaska, Mn - Friday, September 24, 2004 3:26 PM CDT

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How's Mr Smiles?? I miss seeing you all can't wait to see you ...
HUGS- Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, September 22, 2004 9:33 PM CDT

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Hello, precious Lucas! I'm sorry that I didn't post before I left for the weekend, but here is a Rosh Hashana blessing a little late: "Barukh atah Adonai, Elohaynu, melekh ha-olam, she-hecheeyanu v'keey'manu v'heegeeyanu la-z'man ha-zeh (Amein)."

Yes, thank You, Lord, and shalom to dear Lucas and his family. Amen.

Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Monday, September 20, 2004 7:43 PM CDT

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Hi Lucas,
Your friend, Max, is coming to visit today. You and Max use to see each other in Minnesota at the Ronald McDonald House. We have made our woods "spooky" and Max and his sister, Maddie and brother Sam will ride on a golf cart though the woods. I wish you could ride along with us and take Abby, too. We are thinking of you and hope each day brings that beautiful smile to your face. Tell Grandma, Pamela, that I said, "Hello". Max's Gramma Strawberry, Claudia
Claudia Rhode <rhodeberry@aol.com>
Chesaning, MI - Saturday, September 18, 2004 9:10 AM CDT

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Dear Lucas, I got your web address from the Trimper website. Trimper's live in a town not too far from our home and I shared that we should make a point of adding each day a special prayer for other MLD kids and their families when we talk with God. Our prayer is that you have a nice day today at school and that someone that looks at you will have a smile on their face after they see your beautiful smile! Love and Prayers,
The Cuttle Family <donna@cuttle.com>
Belding, MI USA - Wednesday, September 15, 2004 5:35 AM CDT

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Just checking in to say "hi"!! Sounds like you all have been very busy-how is school going? We miss seeing you and need to get together soon.
HUGS & High Fives-
Bobby, Donna, & Buddy Mitchell
B, D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, September 14, 2004 7:52 AM CDT

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Hi Breafast Companion

I have just read your latest bulletin and was very pleased to hear that you've had a good week and that you enjoyed your first week back at school.Grandma has been telling me all the things you have been doing but she didn't tell me about the soccer match that you went to see. What a nice surprise to have one of the star players come and talk to you. But then you're such a super boy and you deserved the treat. I will be speaking to Grandma again tonight to hear how you are today so I will be up to date.

Keep smiling little one. We love you dearly.

Lots of love and tons and tons of kisses as always.
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, England - Monday, September 13, 2004 1:55 PM CDT

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Hi Lucas,
You are such a handsome boy!! Your wonderful smile brightens our day in room 110, at Wescosville Elementary School. We have several new students in Mrs. Crompton's class and many more throughout the building who are anxious and interested in getting to know you. Once again, we will have a bulletin board telling everyone about our friendship and posting the newspaper stories about your visit to our school. We will try to write to you often.
Your fan club loves you!
Mrs. Crompton
Eileen Crompton <ecrom489@aol.com>
Wescosville, pa usa - Friday, September 10, 2004 4:05 PM CDT

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Hi Lucas-
Mitchell started school today and I got home a little while ago and decided to check in on my other favorite guy. I hope you had a great day at school and that we can visit soon. I will call mommy to chat!
Have a great week!!
HUGS-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, September 8, 2004 9:19 PM CDT

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Hi Lucas,
Your picture looks great. We love to check in on you regularly and are always glad when we hear of good times with your family. Hang in there friend!
The Bonney Family <rgbonney@suscom-maine.net>
- Saturday, September 4, 2004 3:17 PM CDT

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Hello Lucas and Family
my name is Jenna and I came across Lucas's page. He is an inspiration and a fighter. He is in my thoughts and prayers. I love meeting new friends and I will come by again to see you he is doing.
Your New Friend Jenna
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Sunday, August 29, 2004 0:19 AM CDT

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Lucas, we are so glad that you have been able to get off some of the meds and will pray that you won't have to go back on them. I know the reality of your problems are sometimes overwhelming, yet you and your family are never overwhelmed - amazing! We pray that you will soon see a turn for the better without any more surgeries, that the Lord will touch you and relax your leg and arm, and that you will be able to stay alert to interact with those you love so much. Lucas, you are simply an inspiration to all of us, an example of what all of us aspire to be. Thank you, sweet boy. Thank you.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Saturday, August 28, 2004 12:31 AM CDT

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I pray for Lucas and your entire family everyday, and give thanks for the support you have lent my sister, Michele, her family and especially my nephew, Anthony. Lucas certainly is a trooper and remains in my thoughts and prayers.
Lisa Scott <leemarie66@aol.com>
Wall, NJ 07719 - Friday, August 27, 2004 10:16 AM CDT

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Have a splendid last day of school!! Mitchell finishes Friday and will be off until the 8th. You guys will have to get together a few times over break-I will call mom & dad to check your super star schedule.
HUGS-
Donna

Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, August 25, 2004 7:45 AM CDT

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I like the new picture of Lucas. What a nice smile to see when you log in. Just saying hi and letting you know I'm thinking of you.
Cindy (Max, Maddie & Sam's aunt)
Albany, NY - Tuesday, August 24, 2004 7:40 AM CDT

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Lucas! I just LOVE the new picture - definitely worth a thousand words! I know that you are wondering what on earth is going on with all these surgeries that barely do you much good, but just know that we are praying that you will see improvement every day, just as we pray for your buddy Max! God bless you, amazing Lucas!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Monday, August 23, 2004 10:29 PM CDT

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Hello All....Thinking of you.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, August 23, 2004 12:15 AM CDT

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Just stopping by to say "hello" to Lucas. We're sending lots of love from California. We're glad to hear that school is going well.

Best wishes to all of you~


Emma & Family - Greg, Erin, Mallorie & Josie www.caringbridge.org/ca/mcgregormld <Family@EmmasFoundation.org>
Martinez, CA - Sunday, August 22, 2004 11:11 PM CDT

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Hi Lucas

Just checking in Sunday afternoon here in "good ole London Town"

Glad you are back at school and laughing.

We think of you every day and you are an inspiration and hero far beyond your years.

God bless you and keep the laughter coming across the pond.

Auntie Mel,Auntie Zelma and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
London, united kingdom - Sunday, August 22, 2004 8:37 AM CDT

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Hi Breakfast Companion!

It's so nice to read that you are now back enjoying school and being so good with your therapies. I have just spoken to Grandma and she has told me how well you're doing. I do hope that the results will get better each day. Keep up the good work. You're such a Super Hero in my eyes.

Uncle Eric and I are so looking forward to seeing you in a few month's time and am sure between now and then you'll be making more progress and as always being ever so brave.

Lots of love and a super big X





Auntie Penny and Uncle Eric <pen6735eric@btinterent.com>
London, UK - Tuesday, August 17, 2004 3:05 PM CDT

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Hello-
Time for whistles and NUK? -I will call!!
Just checking in and wanted to say "hi"!! Loving the Olympic gymnastics on TV but staying up way too late watching...
Snoozing but still sending big hugs-
Donna

Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, August 16, 2004 7:58 PM CDT

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Lucas-
It is me.I hung up that picture above my bed and I just love looking up at it! Please tell Abby "Thanks"!! School and therapy is okay but I really liked hanging out with you! We forgot to play "Gooey Louie"!!
High fives, thumbs up and all that cool stuff-
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, August 11, 2004 8:39 PM CDT

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I hope your first two days back at school were the "BEST"!! Will come by soon for another visit
HUGS-
Donna
D. Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, August 10, 2004 9:24 PM CDT

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Dear Lucas and family,

We just wanted to let you know that we are always thinking about you, and we are glad to hear about Lucas' new wheelchair. Talk to you guys soon.
Aunt Robin and cousin Jeff <lakotasu@enter.net>
Phillipsburg, NJ USA - Tuesday, August 10, 2004 7:46 PM CDT

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Checking every day, I haven't been able to sign in lately. But I pray diligently that Lucas will be healed completely and be able to be the healer for so many others as a doctor. I can't imagine why not. The Lord is full of compassion and His mercies do not fail us.

Lucas, your life is an amazing feat of perseverance in the most trying of circumstances, and while we feel so very sad for your parents and what they must carry in their hearts, we know that your smile feeds them with joy every day. Thank you, dear boy, for being you!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Tuesday, August 10, 2004 1:48 PM CDT

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I am so glad Lucas is home. Way to go. Thinking of you always...
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Tuesday, August 10, 2004 10:02 AM CDT

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How powerful to read about Mom's advocacy! And, of course how wonderful that Lucas is able to come home and be surrounded by the love of family and friends. Always in our prayers!
The Bonney Family <rgbonney@suscom-maine.net>
Freeport, Me - Saturday, August 7, 2004 7:46 PM CDT

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Hi Lucas,

So glad you will be home very soon. Keep up the good work our brave little man.
All our love to Mum, Dad and Abby.
Auntie Mel, Auntie Zelma and Uncle Ian, London England
melanie Russell <ian.russell16@btopenworld.com>
London, England - Friday, August 6, 2004 2:50 AM CDT

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I am so glad to hear that Lucas will be home again with all that love him. How could that not be the best medicine of all. My thoughts are with you and hope that Lucas continues to see gains.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com 214-477-2724; 972-396-1048>
Allen, TX - Thursday, August 5, 2004 10:08 PM CDT

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I think I will call after I post this but HOORAY!!! We are so excited to hear you are home and can't wait to visit !!Sushi anyone? Lucas-how was the shrimp??
HUGS, Hive fives, thumbs up & all that stuff-
Bobby, Donna, & Buddy Mitchell
B, D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, August 5, 2004 4:53 PM CDT

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I'm glad to hear that Lucas is heading home now instead of Labor Day. Home always seems to be the best medicine for these kids. Good for you, Mom, for being strong with the hospital.
Cindy (Max, Maddie, & Sam's aunt)
Albany, NY - Thursday, August 5, 2004 4:14 PM CDT

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Just checking in on one of my favorite guys...keep getting better!
HUGS-
Donna
Donna Anderson -Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, August 4, 2004 7:14 AM CDT

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Lucas & family,
It's great to hear that everything is going well. You are in my prayers. I miss you and hope to see you soon.

Dianna Martucci <sons924@netzero.net>
Howell, NJ USA - Tuesday, August 3, 2004 7:35 PM CDT

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Just wanted to tell you guys we are thinking about you and Luke. I'm looking forward to seeing him soon.

Love, Jon and Sherrie <andruspt@verizon.net>
Ocean, NJ - Monday, August 2, 2004 7:01 PM CDT

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Lucas

We are thinking of you all the time. Hopefully you will be home soon.

Keep smiling and laughing with Abby.

Love to your wonderful parents.

From the Eastern end of the great pond.

Love Auntie Mel,Auntie Zelma and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
London, UK - Sunday, August 1, 2004 3:24 PM CDT

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I am praying that you will get the ok to go home, Lucas! You are an amazing and brave boy to go through all that you do. God Bless!
Robin Bonney <rgbonney@suscom-maine.net>
- Saturday, July 31, 2004 6:31 AM CDT

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It brings tears thinking of the pain that Lucas has to endure at times. I am so hoping that you can bring him home soon. I too remember how unnerving the hospital can be at times and it can't compare to what Lucas must go through. How can we not have a place where hate prevails when it comes to this dreadful disease. My prayers are being sent that Lucas has some better days and that the doctors have the wisdom they need to help to comfort Lucas. May his healing speed from this last round and you all be home again. My thoughts are with you always.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, July 29, 2004 10:37 AM CDT

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Lucas-
When are we going to play "Gooey Louie" again? Mom says that I need to stop practicing on myself when I am in my therapies-I miss you!!
High fives, thumbs up & all that cool stuff-
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, July 28, 2004 7:26 PM CDT

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Hi Guys-
Lucas,I hope you get better days ahead with more restful sleep so your incision heals quickly. Not a day and usually barely an hour passes that I haven't thought about you. You have been such a strong little man with all you have gone through-I still believe you are a member of the group of super heros!! You are a hero in my book for you have always been such a great friend to Mitchell and have always been so kind. Your friendship means so much to him for the sparkle in your eye and the smiles you overflow with when you guys just "hang out" is the "best".
We miss you and send "strength" wishes to help you make little changes forward each day with your therapies. It is tough but you are tougher Lucas-we are so proud of you!!!
Hang tough & gigantic hugs-
Bobby & Donna
Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, July 28, 2004 7:21 PM CDT

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Thinking of you guys everyday and praying for comfort for Lucas and strength for you all. God Bless Abby, what a great kid!

Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbock, TX USA - Wednesday, July 28, 2004 6:49 PM CDT

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Home is good. The best medicine (for all). Thinking of you guys all the time.
Jeff Trimper <jtrimper@cms.maisd.com>
Stanton, MI - Wednesday, July 28, 2004 6:20 PM CDT

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Hello-
I hope everything is moving in the right direction...Can't wait to see you again!!
High fives, thumbs up & all that cool stuff-
Bobby, Donna & Buddy Mitchell
B, D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, July 26, 2004 5:21 PM CDT

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Hi -
Just me again ..checking in on you again!! Hang tough little man you are doing a "rock star" job with tolerating your therapies!!
HUGS & High fives-
Donna

D. Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, July 23, 2004 8:11 PM CDT

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Love the new picture. Praying hard for improvement every day. Godspeed!
The Bonney Family <rgbonney@suscom-maine.net>
Freeport, Me - Friday, July 23, 2004 5:31 PM CDT

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Hi. The new picture is great. I hope everything is working out with Lucas's therapies and I'm praying for a great outcome to the surgery. Love to All... Kathleen
Kathleen Wilson <kmwilson732@aol.com>
Middletown, NJ USA - Friday, July 23, 2004 8:25 AM CDT

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Hi everyone!
We hope you come home soon. We miss you!
Love, The Lindenthals
Kathy Lindenthal <kathylindenthal@yahoo.com>
little silver, NJ USA - Friday, July 23, 2004 7:19 AM CDT

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Hi Lucas,
We are so glad you are doing OK. Next time don't let your dad steal that shrimp !!!!!! You are in our prayers and we hope to see you back in town in time for soccer season.
Keep up the good work and be strong.
The Lehrkinder Family <lehrkinder@comcast.net>
Little Silver, NJ USA - Wednesday, July 21, 2004 9:32 PM CDT

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Dave, Sam, Lucas, and Abbey:

Thank you for all the updates on Lucas. We hope everything goes well, so Lucas will return home as soon as possible. We love you all!!!!!!!!!


Cousin Jeff and Aunt Robin <lakotasu@enter.net>
Phillipsburg, NJ USA - Wednesday, July 21, 2004 4:57 PM CDT

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Oh, it's good to hear that Lucas is alert and recognizing Mom. I have been thinking of you and hope you get the trip home soon.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Wednesday, July 21, 2004 9:08 AM CDT

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Sam and Dave, thank you for the newsy update. It is helpful for Luke's "fan club" to visualize his new surroundings and all that is going on! As always you are making the best of a difficult situation. Hugs and smiles to Lucas and his new friends!
Eileen
Eileen Crompton <ecrom489@aol.com>
Macungie, PA USA - Tuesday, July 20, 2004 9:10 PM CDT

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It is good to hear that things are going well. Thinking of you every day.

Trevor and Angel Ross's mommy
Janet Joiner <jjoiner@incode-inc.com>
Lubbock, TX USA - Tuesday, July 20, 2004 7:57 PM CDT

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It was good to read of Lucas smiling and enjoying the other children in the room. What good stimulation that must be for him. It sounds like the other boys have had some tough times, too.
Thinking of you this day and every day, Claudia
Claudia Rhode <rhodeberry@aol.com>
Chesaning, MI - Tuesday, July 20, 2004 10:04 AM CDT

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THANKS FOR THE UPDATE AND LOVELY PICTURE OF ALL YOUR SMILING FACES!!! I MISS YOU ALL . MY PRAYERS ARE SENT FOR LUKE TO HAVE A STEADY RECOVERY AND GREAT OUTCOME FROM SURGERY. BEST ALWAYS, JANICE VOLK
Janice Volk <TOOTTELS@COMCAST.NET>
Tinton Falls, NJ USA - Tuesday, July 20, 2004 7:36 AM CDT

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Glad to hear all is going well. I hope the therapy situation works out ...as always you are always on my mind!!!!
Hugs & high fives-

Donna <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, July 19, 2004 5:40 PM CDT

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We love the new picture!!

:)

Emma & Family

www.caringbridge.org/ca/mcgregormld

Greg, Erin, Emma, Mallorie & Josie <Family@EmmasFoundation.org>
Martinez, CA - Saturday, July 17, 2004 1:47 PM CDT

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Just checking in.The picture is smashing...it brought a huge smile to my face! You guys look great and I can't wait to see you. Keep healing and smiling-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, July 17, 2004 12:11 AM CDT

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What a cute photo of Samantha,Lucas and Abby. That's a big smile on his face. I hope you are seeing lots of those. Thinking of you in prayer.. Claudia, the Trimper's Gramma
Claudia Rhode <rhodeberry@aol.com>
Chesaning, MI - Friday, July 16, 2004 3:35 PM CDT

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Thinking of you and so glad Lucas has made it through surgery and things are looking to get better. Lots of love from Texas.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, July 15, 2004 7:37 PM CDT

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Lots of love to you Lucas! We miss you and will try to plan a visit as soon as you are up for it.

Missing you a whole bunch,

Auntie Cory, Uncle Stephen and Jonah David
The Cowans <coryandstephen@aol.com>
Guttenberg, NJ - Thursday, July 15, 2004 4:29 PM CDT

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Lucas-
We love you so very much and have been praying so hard for you. We said a special little prayer Sunday night and thought about you frequently all day Monday. We just got back in town and I immediately came to check in on you! You always continue to amaze us with your beautiful spirit and your neverending laughter...can't wait to see that beautiful smile. Hang tough and heal!!
Big HUGS, high fives, and thumbs up-
Bobby, Donna, & Buddy Mitchell
Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ USA - Wednesday, July 14, 2004 9:50 PM CDT

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So glad to read the news on Luke's progress! The missing tooth is rather scary, but when Lucas is feeling better the story will provide laughs and another chapter in the "Viscomi Chronicles". Hoping everyone will have a restful night. Smiles from Eileen and 600 Wescosville friends!
Eileen Crompton <ecrom489@aol.com>
Macungie, PA USA - Wednesday, July 14, 2004 9:47 PM CDT

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Lucas, you are one amazing boy! I keep wanting to say "young man," because you are so brave to go through all of this and still find humorous things to laugh about. I will be praying that you will be awake and comfortable when you leave for Children's and that it will be a good transition. What a blessing to get a private room - one less stressful thing to think about. God bless you, sweet Lucas, with total peace and joy. God loves you, and so do I.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Wednesday, July 14, 2004 8:25 PM CDT

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Thanks for the update. Let's hope Lucas comes awake and looks for money under his pillow for his lost tooth. You have had such a rough two years. Praying for good days ahead. Claudia
Claudia Rhode <rhodeberry@aol.com>
Chesaning, MI - Wednesday, July 14, 2004 4:21 PM CDT

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Thinking of you all every single day and wishing you the very best! You are constantly in my prayers!
Pat Lang <patricia.lang@ge.com/www.caringbridge.com/page/maddigan>
Chaska, MN USA - Wednesday, July 14, 2004 3:17 PM CDT

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Love & Prayers to all of you.
Bill & Elaine Cannan <bcnco@optonline.net>
Lakewood, NJ - Wednesday, July 14, 2004 1:12 PM CDT

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Lots of love and good wishes are being sent your way. My thoughts will continue to be with you....
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Wednesday, July 14, 2004 12:56 AM CDT

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Hi Breakfast Companion

Uncle Eric and I were so pleased to hear from Grandma that the surgery went well, and we're praying that you will go from strength to strength during the following days. I will be speaking to Grandma most days, so will have regular updates.

Lots of Love to you as always and to Mom, Dad and Abby.
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, England - Tuesday, July 13, 2004 3:41 PM CDT

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You are on my mind, all the time little Luke. God Bless you nephew.
Uncle Frank & Family <LakotaFV@aol.com>
The "Hamptons", PA USA - Tuesday, July 13, 2004 3:22 PM CDT

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Hang in there Lucas. Glad to hear the surgery went well.
Cindy
Albany, NY - Tuesday, July 13, 2004 9:44 AM CDT

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We have been thinking about you guys and are so happy the surgery went well. I will see you soon.
Jon and Sherrie <andruspt@verizon.net>
Ocean, NJ - Tuesday, July 13, 2004 7:46 AM CDT

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Praying hard that all goes well for Lucas!

The Bonney Family <rgbonney@suscom-maine.net>
Freeport, Me 04032 - Tuesday, July 13, 2004 4:51 AM CDT

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Thank you, Grandpa Barry, for the good word. Still praying!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Monday, July 12, 2004 8:44 PM CDT

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We're glad to hear that everything went well with the surgery. You continue to be in our thoughts and prayers.

www.caringbridge.org/ca/mcgregormld
Greg, Erin, Emma, Mallorie & Josie <Family@EmmasFoundation.org>
Martinez, CA - Monday, July 12, 2004 8:26 PM CDT

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Hi Lucas,
My name is Jaime and i just found your caringbridge page. I am thinking about you.
Jaime <Jaime13042@aol.com>
NJ USA - Monday, July 12, 2004 8:19 PM CDT

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Remembering our time together at the Ronald McDonald House in Minnesota and praying that the discomfort will be gone and better days ahead for Lucas and your family.
Claudia, the Trimper's Gramma Strawberry
Claudia Rhode <rhodeberry@aol.com>
Chesaning, MI - Monday, July 12, 2004 8:18 PM CDT

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You are all on my mind as I pray for Luke's successful surgery. I am sure it has been a long day for everyone with more to follow. I pray for strength for Sam and Dave as you tend to Luke and Abby's needs during this time. You are remarkable parents and a wonderful team! The East Penn Press story about Luke's visit to Wescosville said exactly that. I trust Dave's brother was able to get a copy.
With Love,
Eileen and all your Wescosville friends
Eileen Crompton <ecrom489@aol.com>
Macungie, PA USA - Monday, July 12, 2004 3:47 PM CDT

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Praying throughout the day for sweet Lucas.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Monday, July 12, 2004 3:00 PM CDT

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Praying for a successful surgery for sweet Lucas tomorrow, that it all will be as stressless as possible, and that the surgery will take care of his discomfort. God bless you with His presense and love.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Sunday, July 11, 2004 4:41 PM CDT

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The Kelly family will be thinking of you on Monday as you have your surgery. Best of luck Lucas!
Jean Kelly <davidnkelly@prodigy.net>
Little Silver, NJ USA - Sunday, July 11, 2004 3:45 PM CDT

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Hi Breakfast Companion

We will be thinking of you on Monday and know that you will be very brave as always when you have your surgery. All our prayers will be for you and we will be very anxious to hear from Grandma that all went well. Keep up your spirits and your lovely smile.

Lots of love and kisses as always.


Auntie Penny and Uncle Eric <Pen6735Eric@btinternet.com>
London, UK - Friday, July 9, 2004 12:26 AM CDT

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Just four more days. Either you are very excited, very nervous, or both. We are all praying for a perfect surgery, that the Lord will have His hands over the surgeons' hands, and that nothing extra gets left behind :). Anyway, I'm sure that Lucas will be protected during surgery by the Lord's kind eye, guiding and directing as only He can. May the Eternal bless Lucas with total relief, because He loves him. Amen.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Thursday, July 8, 2004 7:19 PM CDT

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Thinking of you as you begin to prepare for the surgery. I wish you nothing but the best. I certainly hope and pray for great results. Hang in there!
Joanne Rhode
Michigan, - Wednesday, July 7, 2004 8:50 PM CDT

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I will be thinking about you as you continue to prepare for the up-coming surgery. My prayer is that Lucas can go in and come out of this being more comfortable and that the days are as uneventful as possible.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com 214-477-2724; 972-396-1048>
Allen, TX - Tuesday, July 6, 2004 11:00 AM CDT

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Thinking of you every day and sending you my hopes and prayers.
Miss you all.
Caryn <carynm@aol.com>
New York, New York - Tuesday, July 6, 2004 8:54 AM CDT

---

My thoughts are with you as you begin taking the next steps to helping Lucas become more comfortable. I check in on you weekly, and pray for you daily. You will continue to be in my thoughts and prayers especially as you prepare for another surgery and hospitalization. I pray that the end results are well worth it! Thank you for taking time out of your busy lives to keep the rest of us updated.
Staci Nash (www.caringbridge.org/ky/presleynash) <slimandstacinash@aol.com>
Bowling Green, Ky - Thursday, July 1, 2004 11:40 AM CDT

---

Hi Lucas,
Sorry to hear you're headed to the hospital again but I'm sure the results will be worth it. Always remember that we may not always sign your guestbook but there are lots of people that check in on you daily. Good luck with surgery...I'll be thinking about you.
Cindy (Max, Maddie & Sam's aunt)
Albany, NY - Tuesday, June 29, 2004 8:33 AM CDT

---

I liked hearing about being able to sit out as a family. That is very cool and can relate. I will be thinking about you as you take the steps to help Lucas become more comfortable. There are no words that can truly reflect just how wonderful these kids are.
Rhonda Frachiseur and family http:\\www.caringbridge.org\tx\nathan <brawnygrl@yahoo.com>
Allen, TX - Monday, June 28, 2004 1:39 PM CDT

---

I thought that I had left a message the other day, but I don't see it. Sorry.

Lucas, I have July 12th on my calendar and will be praying non-stop that day for you - that your suregery will be perfect, that you will be free of this awful pain and that you will be able to see the light of life again. You are such a fine young boy and deserve the joy of childhood. Your kindnesses are never forgotten, dear Lucas, before the Father and before us. We don't understand why this world has to be so hard for you and so many others, but we do know that the Lord is working to change all that. God bless you, Lucas, with total healing and a chance to be all you had planned to be. Your heart is dear to mine.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI - Sunday, June 27, 2004 3:32 PM CDT

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Hello Lucas!
What's up? How're you feeling? I pray for you everyday! Hope you have an excellent summer!

Your friend,
Ryan Lehrkinder <Lehrkinder@comcast.net>
Little Silver, N.J. USA - Friday, June 25, 2004 4:58 PM CDT

---

Hi Luke,
We been thinking about you out here in the Hamptons (Northampton Pa). How have you been? We are coming down soon to see you. We'll let mommy & daddy know when. You are just a blast to be with. I hope it hasn't been too hot for you recently....so stay cool little guy. We think of you ALL the time. Love Uncle Frank, Aunt Sheila and Lindsey Rose.
Uncle Frank <LakotaFV@aol.com>
Northampton, PA USA - Tuesday, June 15, 2004 11:03 AM CDT

---

Hi Breakfast Companion!

I didn't realise it was such a long time ago that I wrote to you last.I have given myself a big smack on the hand for being so naughty. But I do speak to Grandma lots and lots and you can guess who we are talking about all the time - YOU and Abby. I do hope your smile is as big as ever and that you are comfortable. I am sure the kittens are keeping you entertained and when Uncle Eric and I come over later in the year we will look forward to seeing you enjoying their antics. Keep up the good work at school. You are such an inspiration to us all, and you never cease to amaze us.

Lots of love and tons and tons of kisses.


Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, England - Monday, June 14, 2004 1:00 PM CDT

---

Lucas, you have been one busy young man! I pray daily that the spasms will calm down and that you will be able to enjoy more outings with your family. I feel so very bad that some of your outings have caused you so much pain - it brought back some bad memories for me, too, but my prayer is that your outcome will be at least as good as mine. He is able, He is willing, and He is awesome! Shalom to you, dear Lucas.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI - Sunday, June 13, 2004 11:10 PM CDT

---

Happy Summer, Lucas!
Just thinking about you.
Hope you keep laughing!

Here are some summer fun jokes~

Why did the cuccumber blush?
He saw the salad dressing!!!!

What did one campfire say to the other?
Let's go out sometime!!!!!

Why did the coach send in the second string?
He wanted to "tie" up the game.

What did the hamburger name her daughter?
Patty

Why are movie stars so "cool"?
Because they have so many fans!!!!

Have a happy-sort-of day!!!
Susan Stillo Wilkins <swilkins@ptd.net>
Stroudsburg, PA USA - Saturday, June 12, 2004 9:26 PM CDT

---

Just stopping by to cheer on a wonderful boy in NJ! You rock, Lucas!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Thursday, June 3, 2004 3:19 PM CDT

---

Lucas

Keep up the stubborn fight against this disease.

Keep smiling and Keep happy.

Love to you all in the USA.

Auntie Mel , Auntie Zelma and Uncle Ian


MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
London, united kingdom - Monday, May 31, 2004 5:54 AM CDT

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Lucas, I went to bed last night thinking about what your parents wrote on your page and praying that you will be completely healed. I'm sooo glad that you are stubborn --- I mean DETERMINED! :) That is how you have gotten this far, with a smile on your handsome face, fighting this disease for all it's worth. Only the Lord knows how much your hard work has affected your outcome - and I have such high hopes for the Trimper Fellowships. God bless you dear people, and Shalom for Lucas and you all.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI - Saturday, May 29, 2004 7:02 AM CDT

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hi luke i was just thinking about you and just consider myself very fortunate and lucky.I say prayers everyday for you and your courage and inspiration will be forever timeless with me.Keep the faith,because everything will be ok.God will make sure of that.All my love chris Tierney and family
chris tierney <christtierney@aol.com>
little silver, nj - Friday, May 28, 2004 6:54 PM CDT

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It's good to hear you have been able to get out. I remember the first time Nathan got out of the hospital and how he loved the breeze on his face and being able to see people. I'm thinking about you.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Friday, May 28, 2004 2:14 PM CDT

---

Checking in and always thinking about you...
Hugs-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
eatontown, nj - Wednesday, May 26, 2004 7:41 PM CDT

---

Hiya Buddy

Sorry that we haven't written recently, we have been visiting England for the past few weeks, although we didn't manage to see the Queen, like you did.

Also really, really sorry that we missed your birthday - we will make plans to come and visit very soon and bring you your birthday present.

Everyone in Gants Hill was very happy to see Jonah. We took him to see all the sights; like the house where your mum and Uncle Russell grew up and Gearies School. Jonah was very impressed!

Will see you very soon.

Wishing you a very, very, very happy belated birthday

With lots and lots of Love
Uncle Stephen, Auntie Cory and Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Sunday, May 23, 2004 2:24 PM CDT

---

Thinking of you & hoping you are doing well!

:)

Emma's Family
www.caringbridge.org/ca/mcgregormld
Greg, Erin, Mallorie, Emma, and Josie <Family@EmmasFoundation.org>
Durham, NC & Martinez, CA - Sunday, May 23, 2004 12:14 AM CDT

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Looking forward to hearing how well the Botox works. Lucas, you are such an inspiration to us! Your willingness to laugh is a great testimony to your family's wonderful influence in your life. Keep 'em smiling, big 10 year old!

Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Friday, May 21, 2004 7:40 PM CDT

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Happy Belated Birthday. I love the picture. I think of you every day.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, May 20, 2004 10:32 PM CDT

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HI Luke,

So sorry we missed your birthday, hope you had a great day.

So glad you are enjoying the cats, hope they are being good

Keep smiling our little hero

Lots of Love

Auntie Mel and Uncle Ian, London
melanie russell <ian.russell16@btopenworld.net>
London, - Tuesday, May 18, 2004 7:29 AM CDT

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What fun it was sitting out on the swing set with you!!
You are the BEST!!
High Fives & Thumbs up-
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, May 17, 2004 10:00 PM CDT

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Very well put, as he will always be your Little Luke ..Happy Birthday 10 year old!!








holly, dj , guy and eve <holdeej@aol.com>
little silver, nj usa - Friday, May 14, 2004 8:14 PM CDT

---

Happy belated birthday Lucas!
Donna Volz <ldvolz@msn.com>
Earlham, IA - Friday, May 14, 2004 12:57 AM CDT

---

Happy, Happy Birthday Lucas. I hope "ten" is an extra special year for you. I hope the years to come just keep getting better and better. May they offer more hope for MLD children and the regaining of lost skills. Your family is always in our thoughts and prayers.
Joanne Rhode
MIchigan, - Friday, May 14, 2004 11:09 AM CDT

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Happy 10th Birthday Lucas!!!! I hope you have a warm, wonderful day with your family and friends.

Michelle C. Golightly <golightlymoo@juno.com>
Booneville, Iowa - Thursday, May 13, 2004 8:13 PM CDT

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Hi Lucas,

We hope you are having a very Happy Birthday!


Brownie Troop 812 <davidnkelly@prodigy.net>
Little Silver, NJ Monmouth - Thursday, May 13, 2004 2:38 PM CDT

---

Hi Breakfast Companion

Uncle Eric and I want to wish you a very happy birthday today and hope you have a lovely time. I know Grandma and Grandpa will be seeing you now they have returned from being with us, so am sure you will all enjoy yourselves.

Lots of love and kisses on this special day.
Auntie Penny and Uncle Eric <pen6735eric@btinternet.com>
London, England - Thursday, May 13, 2004 12:14 AM CDT

---

Happy Birthday, Lucas!
Ana Viscomi <AnaViscomi@aol.com>
Red Bank, NJ - Thursday, May 13, 2004 7:48 AM CDT

---

HAPPY BIRTHDAY LUCAS!!!!
You are now officially 10 years old-wasn't it just last year that you were just shy of 2 years old and calling us "Do-Do and tit-chell"??? I can't believe it.
We hope you have a wonderful day today!! We will stop by and drop off a little treat for you...
Gigantic hugs, High fives, and "Whoo-Hoo's"-
Bobby, Donna & Buddy Mitchell
B, D & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, May 13, 2004 7:08 AM CDT

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Happy Birthday Lucas !! I hope that the Botox injections have made you move a bit easier. Enjoy that hot tub!
Ruth McKay <ruthemck@bellsouth.net>
Pendleton, SC - Wednesday, May 12, 2004 10:25 PM CDT

---

Hi there Lucas. We would love it if you would stop by the Smile Quilts site http://smilequilts.com/ and have mom fill out a request form for a Smile Quilt made just for you. These are virtual online quilts that you can look at over the internet. Our Quilting Angels would just love to make you one of your very own. We'll be keeping you in our prayers and thoughts. Hugs and love, Smile Quilts Angels
Smile Quilts Angels <smilequilts@smilequilts.com>
- Monday, May 10, 2004 5:55 PM CDT

---

Lucas

It has been ages since we have posted a message to you.

Apologies.

We will be seeing Grandpa and Grandma tomorrow Sunday here in England.

Also at the moment Auntie Cory Uncle Stephen and Jonah are here also.

We all send you our love and hope you enjoy the cats, Auntie Mel loves cats so you are in good company.

Keep smiling our little hero and we love you lots.

Love to Mum and Dad and Abby.

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
London, united kingdom - Saturday, May 8, 2004 4:46 PM CDT

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WE are home!Whew..our airplane flight late Sunday was very bumpy!!I got sick and mommy almost did too- but she couldn't because she didn't have any hands to hold a bag for herself- since she was holding mine. She turned GREEN! We were on a very small airplane and all this rain we got monday, is what we flew through!! I thought it was fun at first and started laughing but then it didn't stop for 45 mins!UGH!!!!!
I am hoping to visit you this weekend if our mom's can work it out. I can't wait to see your new kittens...
High fives-
Buddy Mitchell
mitchell anderson-sweeney <mitchells_world@yahoo.com>
Eatontown, nj - Tuesday, May 4, 2004 5:49 PM CDT

---

Hi Lucas,
That is great news about your kittens! They must feel so good when they are curled up next to you. Which one is the boss? Abby must be so happy. The good thing about cats is they don't bark. Meow for now...The Mendoza Family
Mendoza Family <cynthiammendoza@msn.com>
Little Silver, NJ USA - Tuesday, May 4, 2004 1:49 PM CDT

---

Hi Lucas! How exciting to hear you have 2 new kittens.
Well you know me--I love sending you jokes....so here are some about cats.
Keep smiling!!!!

Why did the cat put oil on the mouse?
Because it sqeaked!

What does a cat like to eat on a hot day?
A mice cream cone!

What do cats eat for breakfast?
Mice Krispies!

Why did the cat run from the tree?
Because it was made from bark!!

Ha-ha-ha
Have a happy day!
Susan Stillo Wilkins <swilkins@ptd.net>
Stroudsburg, PA USA - Sunday, May 2, 2004 10:43 PM CDT

---

How's my hero today. Whilst we are away from you in England and France I think of you all the time and miss you so much. I know that we speak to mummy every day, but it's not the same as being with you. Your grandpa is tolerating the vacation quite well, he is not one for sight-seeing and think that he he has had enough and wants to be home again. He is teasing Uncle Eric a lot, but he is a good sport and puts up with it. I have bought lots and lots of presents for you and Abby, I don't think I have any money left! Keep smiling my darling and enjoy Lilo and Stitch - I am impatient to meet them, Grandpa will take lots of pictures of you both with them which he will print on your web site. Lots and lots of love and kisses to my Hero.
Grandma and Grandpa
Nice, France - Saturday, May 1, 2004 3:05 PM CDT

---

Don't worry about updates - we pray everyday no matter what. Lucas is such a fighter, and his love of life makes it easy to hold him before the Father.

I'm so glad to hear that the kittens are working out so well. Cindylou scared ME from all the way out here! :) I pray that the body vest works out for him.

Lucas, you are one awesome kid!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Friday, April 30, 2004 9:18 PM CDT

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What a great update. You are all a wonderfully courageous and positive family and I feel privelidged to know you through your great journalling. Lucas, you are on my mind constantly, and I check for updates every couple of days. I wish you all ease and comfort and hope the vest is a big help. Enjoy Lilo and Stitch!
Love,

Robin Bonney <rgbonney@suscom-maine.net>
Freeport , Me USA - Thursday, April 29, 2004 6:56 PM CDT

---

Nice update. I bet the beach walk must be soothing for Lucas. It's also nice to hear you have the continued support in meeting the many needs Lucas has. You guys are great parents and I think of you daily.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, April 29, 2004 10:47 AM CDT

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Good luck tommorrow with the casts!! Can't wait for the next visit!!
-Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world @yahoo.com>
Eatontown, NJ - Sunday, April 25, 2004 3:44 PM CDT

---

It is good to see your update and glad there are those times that Lucas can laugh and you all can enjoy being together. My thoughts are with you.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, April 22, 2004 4:15 PM CDT

---

Hi Lucas~

We're another family affected by MLD. We think about you lots & hope you are doing well. I'm glad to hear about the van & your big accomplishment in getting through a whole week of school. That's great! We wish you all the best.

www.caringbridge.org/ca/mcgregormld (Emma's site)

The McGregors
Greg, Erin, Mallorie, Emma, and Josie <Family@EmmasFoundation.org>
Martinez, CA and Durham, NC - Saturday, April 17, 2004 11:09 PM CDT

---

Lucas-
Hope you are enjoying your spring break!! Will pop by to say "Hi" real soon. Mitchell has been practicing "picking a good one" and can't wait until next time!!!!!!!
Gigantic Hug to you-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, April 13, 2004 7:45 PM CDT

---

Hi

Lucas

Glad you have the van at last and that you are more comfortable now.

Well done re the 5 days at school.

Keep smiling and love to you as always.

Mel and Ian Russell

MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
London, united kingdom - Monday, April 12, 2004 6:01 AM CDT

---

Thanks for the update. So great to hear that the van provided Lucas with a more comfy ride. Praying for you!
Happy Passover and Easter!
The Bonney Family <rgbonney@suscom-maine.net>
- Friday, April 9, 2004 9:03 PM CDT

---

Again, thinking about you and hoping it helps to be able to get out. It has to be great to have gotten the van.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
- Friday, April 9, 2004 10:39 AM CDT

---

Lucas..........
Hello! Hope you're feeling grrrrrreeaaattt(great). The weather is changing and hopefully you'll stay warmer. Hope to see you outside. I think of you often!

*~RYAN~*
Ryan Lehrkinder <Lehrkinder@comcast.net>
Little Silver, N.J. United States of America - Wednesday, April 7, 2004 5:20 PM CDT

---

Thinking of you....
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
- Tuesday, April 6, 2004 1:26 PM CDT

---

Always so good to see you ...you look "Mar..ve..lous"!!!
Can't wait until next time!
High fives dude-
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown , NJ - Monday, April 5, 2004 12:59 AM CDT

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Lucas,
Happy to hear you've been able to attend school. With spring on it's way it'll be great to get out and about even more. Be brave, stay strong, believe in 100%.
Cindy (Max, Maddie & Sam's aunt)
Albany, NY - Wednesday, March 31, 2004 8:53 AM CST

---

Checking in..hope all is well!!
Will call soon!!
HUGS-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, March 29, 2004 8:50 PM CST

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Hello Lucas and Family,
My name is Jenna and I came across Lucas's site. He is a real Warrior and Fighter in life. I love his smile in life, it is aweseome! Lucas is also in my prayers.
http://www.carignrbidge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Monday, March 29, 2004 1:00 AM CST

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Hi there! I've enjoyed reading about Lucas on this webpage. I wanted to let you know that I live in Macungie; my children attend East Penn School District like Lucas did. More importantly, I want to tell you that my youngest daughter, Eleni, had leukodystrophy. She had globoid cell leukodystrophy (Krabbe disease). We lived with this nightmare for over 5 years. If there is anything I can do to help you, please let me know.
Nitsa Levidis <levidisp@allentownsd.org>
Macungie, PA USA - Friday, March 26, 2004 8:10 AM CST

---

Thinking of you and sending BIG HUGS...
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, March 23, 2004 7:26 PM CST

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Hi Lucas!
How are you? How has school been? I hope you enjoy it. You're in my prayers Lucas!
Ryan
Ryan Lehrkinder <Lehrkinder@comcast.net>
Little Silver, N.J. U.S. of A. - Wednesday, March 17, 2004 4:32 PM CST

---

Hello Lucas! I haven't written in a while, but God hears my prayers every day for you. Nice to see the "happy" photo.
Here are some jokes to keep you "smiling"!

What did the monster say after his brain transplant?
"Wait I changed my mind!"

What goes "ha--ha---ha--clonk?
A man laughing his head off!

What did Frnakenstein say when he saw the bolts in his neck?
That's the last time I get my ears pirced by a near-sighted guy!

How can you tell if a mummie has a cold?
It starts coffin!

Ha-Ha-Ha
Have a silly sort of day
Love, cousin Sue and family
Susan Stillo Wilkins <swilkins@ptd.net>
Stroudsburg, PA USA - Tuesday, March 16, 2004 10:25 PM CST

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Hi lukey,
How are you today? Well I am good today.
Have an awsome day!
love,
Austin in Mrs.Cromptom's room
austin <ecrom489@aol.com>
Wescosville, pa usa - Monday, March 15, 2004 10:13 AM CST

---

Lukie

Great to be home.

Glad things are a bit easier.

Remember "home is where the heart is."

Be well and keep smiling.

Mel and Ian Russell
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, united kingdom - Sunday, March 14, 2004 6:12 AM CST

---

Our thoughts and prayers are constantly with you. Extra hugs for you all that better days are coming.

The Gendels <sgends@comcast.net>
Caldwell, NJ - Friday, March 12, 2004 9:03 PM CST

---

Keep up the good work, Lucas - the fellow is on his/her way and soon MLD will be wiped out forever. Gotta believe! Love you, sweet boy!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Thursday, March 11, 2004 1:39 PM CST

---

Hi Breakfast Companion!

I am so glad you are home again and that you seem to be getting over the last operation well. Keep up your wonderful spirits. We are always talking about you and admiring your ability to get over all these set backs. You are truly one apart from the rest of us and Uncle Eric and I wish you a very speedy recovery. I'll be speaking to Grandma tomorrow, so will hear the very latest news.

Lots of Love and kisses to you all.
Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, England - Wednesday, March 10, 2004 1:19 PM CST

---

Oh Lord! You alone know the answer to Lucas' needs, and we ask You in Your infinite mercy to guide the ones who love and care for him, so that his pain can be eased. With Jane, we curse this evil illness to its proper death. We ask that You will direct the researchers to the cure. We ask that You relieve Lucas' pain as a great miracle from Your loving hand. We are desperate for this adorable boy, dearest Lord! We thank You for the answer that is coming. In Jesus' mighty name, Amen.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimperland - Monday, March 8, 2004 11:14 PM CST

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Hi!

Glad you're home now and enjoying your videos! There's no place like home!

We love you!
Auntie Cory, Uncle Stephen & a little boy with a schmutzy nose! <coryandstephen@aol.com>
Guttenberg, NJ - Monday, March 8, 2004 8:28 PM CST

---

Just checking in ...will call Mom & Dad tommorrow!!
Hope everything is getting better and to see you real soon.
Hugs & High fives-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, March 8, 2004 7:58 PM CST

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Dear Lucas, We are helping you with your disability and I have a bad one too. I will be praying for you. Keep a smile on that cute face. Talk to you soon. Love, Austin in Mrs. Crompton's room.
austin w. <ecrom489@aol.com>
wescosville, pa usa - Monday, March 8, 2004 10:01 AM CST

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I didn't do my nightly check last night and didn't find out about surgery until tonight. Darn! Darn, darn, darn!!! Those are not the words I would choose first.

My prayers are for only Lucas tonight. God, please hear us!!!!
Jane Trimper <jatrimper@cms.maisd.com>
Stanton, MI - Saturday, March 6, 2004 10:07 PM CST

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Hi You Guys!

Once again, just checking in to see how you are and sending lots of love,
Auntie Cory, Uncle Stephen & "GONAH DAVID COWAN" <coryandstephen@aol.com>
Guttenberg, NJ - Saturday, March 6, 2004 7:51 PM CST

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Hi Lucas-
I was just checking in before I called mom to see if we could still come over for a visit today. When you get home we will come-PROMISE!! Things have been very busy for you ...keep your head up Lucas. We love you so very much and send you prayers of strength.
Big Hugs and High fives-
Bobby, Donna, & Buddy Mitchell
B,D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Saturday, March 6, 2004 9:33 AM CST

---

Hi all

Sorry Lukie is still having to fight all the time.

It seems you have a wonderful team of friends ,relatives and supporters.

We are trying for you from this end to see if we can link the UK support and USA team with publicity for the Duke Foundation and we will let you know soon.

If there is anything else we can do let us know.

With love to you all.

Keep smiling as much as you can.

Mel and Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Saturday, March 6, 2004 8:04 AM CST

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Good Luck today Lucas! We love you with all of our hearts!
Auntie Cory, Uncle Stephen & "GONAH DAVID COWAN" <coryandstephen@aol.com>
Guttenberg, NJ - Friday, March 5, 2004 12:40 AM CST

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Thank you for mentioning the Trimper research project. We think of Lucas each day and pray for his skills to be regained. The journey of an MLD parent is one of pain and frustration, but there will be joy when we find the help these children need. We often speak about our life together at the Ronald McDonald House, Abby and Maddie and Sam running around from house to house, and me on the chase trying to keep up with them. Sending love and a hug, Claudia
Trimper Gramma, Claudia <rhodeberry@aol.com>
Chesaning, MI - Tuesday, March 2, 2004 6:56 PM CST

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Thinking of you....
Rhonda Frachiseur and family http:\\www.caringbridge.org\tx\nathan <brawnygrl@yahoo.com>
Allen, TX - Tuesday, March 2, 2004 4:10 PM CST

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hi Luke u have no idea who iam, but I am oe of the
thousands of your fans and supporters. We are bringing as many pennies as we can Just remember those who help you
are trying to make your dream come true.I know how it feels to have a disability i have one in behavior.But i wont give up you shouldn't either see ya later dont forget we are your freinds.
T. H. <ECROM489@AOL.COM>
wescosville, Pa america - Tuesday, March 2, 2004 1:02 PM CST

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Hey Lucas,
Your difference makes you so very special! Keep shining and never loose hope. I'm praying for you!
Keep smiling!!
Brianna Reinhard <ECROM498@AOL.COM>
Wescosville , PA USA - Tuesday, March 2, 2004 12:43 AM CST

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Dear Lucas,
What's up!? I am a 5th grade student. I made a poster for you. I am praying for you! You rock!!!



Anoushka Barpujari <ECROM489@AOL.COM>
Wescosville, PA USA - Tuesday, March 2, 2004 12:23 AM CST

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Dear Luke,
I hope we will get alot of money to help buy the van!!
I know you don't know any of us, but we know you. I will be praying for you and your family!
Laiken Baillie <ECROM489@AOL.COM>
Allentown , PA USA - Tuesday, March 2, 2004 11:56 AM CST

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Okay-
So it is 10pm-do I call!!NOPE!! Not risking that you might be sleeping "snug as a bug..." and your parents are doing the same. I will call tommorrow but want to know how your doctors visit went on Friday??
I am feeling better now ... so you will definitely be receiving a visit as soon as I can coordinate with your mom.
Hugs for now-high fives later~
Donna:)
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, March 1, 2004 9:11 PM CST

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Dear Lucas,
Just keep smiling and you will feel better soon! If you keep believing in yourself you will feel better. You just can't give up hope! Love, Ashley and Qiana

Eileen Crompton <ecrom489@aol.com>
Wescosville, PA USA - Monday, March 1, 2004 12:39 AM CST

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Hi Lucus,
Keep smiling.
People are volunteering to give you bags of pennies.
We hope you feel better.
Love,Anastasia P. and Rose L.

Eilleen Crompton <ecrom489@aol.com>
wescosville, pa usa - Monday, March 1, 2004 12:21 AM CST

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Dear Lucas,
We like your picture. We like you and hope you feel better.
Love,Margaret and lauren.

Eileen Crompton <ecrom489@aol.com>
Wescosville, PA usa - Monday, March 1, 2004 11:17 AM CST

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Dear Luke,
It's Aaron again. We are looking forward to seeing your dad next week at Wescosville. Ask him if he will bring a picture of you. P.S. Mrs.C.,Mrs.W.,Mrs.M.,Mrs.H.,T.J.,Nick,Austin,and Ms. Kirka send hugs and kisses.

Eileen Crompton <ecrom489@aol.com>
Wescosville, PA usa - Friday, February 27, 2004 9:42 AM CST

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Wanted you to know I think of you often. Lucas is so blessed to have you as his family. You are all such an example of patience, love and caring. Take care of yourselves and I pray that Lucas has some relief of his discomfort soon.
Donna Volz <ldvolz@msn.com>
Earlham, IA - Friday, February 27, 2004 8:38 AM CST

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Sam and Dave

Sorry that Lucas is having more bad then good days.

Please know that we love you all and send our best wishes to you as always.

We have posted a note on the Trimper's site to see if we can help bring the UK and USA support groups/foundations together for a major push at publicity and fund raising for you.

We would love to help from this end if we can.

All the best

Mel and Ian

MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, united kingdom - Friday, February 27, 2004 5:02 AM CST

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Lucas-
Okay, so I really miss hanging out with you -maybe we can visit this weekend after your visits to the doctors. I hope everything goes good!!!!!!
-High fives dude-
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ USA - Thursday, February 26, 2004 7:14 PM CST

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Dear Luke,
I want you to know Mrs. Crompton and I are helping to get money for your van. I hope that you enjoy your sister sleeping in your room, I love my brother to sleep with me too.
your buddy, Nick Tremmel
Nick Tremmel <Krazynuthouse@cs.com>
Alburtis , Pa - Tuesday, February 24, 2004 6:59 PM CST

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Hi Luke,

I hope the last few days have been better ones. At least the below zero weather seems to be a thing of the past. I'm laughing because it's snowing out as I typed that. Well, at least it doesn't seem to be sticking. I love the new pictures. You sure have a great smile! Say Hi to your Mom, Dad and Sister for us.

Love, Kathleen,Robert,Grace and Julia
Kathleen Wilson <kmwilson732@aol.com>
Middletown, NJ - Tuesday, February 24, 2004 10:07 AM CST

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Just me checking in on you...
Hugs -
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, February 23, 2004 8:26 PM CST

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hi luke .Just was thinking of you and was just about ready to feel sorry for myself for something irrelevant.You are an absolute hero to me lucas.I always remember how loving you were with my son .That is such a rare quality these days for someone to be able to openly show your emotions without having any care what other's may think.You cant ever fake being that way luke .You really are in my eyes one of God's special angel's.You will alway's be in my thought's and prayers and you are truly an inspiration and one of my forever hero's.
Chris Tierney <CTIERNEY@KNIGHTTRADING.COM>
LITTLE SILVER, NJ - Friday, February 20, 2004 3:08 PM CST

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Hi Lucas,
I like the new pictures...and the big smile! How great to be surrounded by such a big wonderful family.
Be brave, stay strong, believe in 100%.
Cindy (Max, Maddie & Sam's aunt)
Albany, NY - Friday, February 20, 2004 8:24 AM CST

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Hi Lucas-
We love your new pictures.."you look marvelous"!! What a gathering you had with the Viscomi family and Grandma & Grandpa Sinclair at your home. You look as if you were so very happy with all the excitement of everyone being there!! What a great day for you-We are so happy!!
We hope school is going well and that each day just gets better and better!!
Hugs& High fives to you from each of us-
Bobby, Donna, & Buddy Mitchell
B,D,& M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, February 18, 2004 8:33 PM CST

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Lots of love and prayer for comfort and healing. Lucas- I love your smile!!!
Prayers from TX
Lubbock, tx - Tuesday, February 17, 2004 0:05 AM CST

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Hi Lucas!

How are you?

We love the pictures! You all look great and we LOVE your fabulous smile.

Nothing special going on here, except Jonah has had a miserable cold. He absolutely HATES when we wipe his nose, probably because it is so red and sore. Anyway, tonight, after a HUGE messy sneeze (you can't imagine!) he said, "nose...happened!" Stephen and I were hysterical!

Miss you sweetheart. We were planning to see you on Sunday, but we'll have to see how things go.

Lots of love from us
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Monday, February 16, 2004 8:29 PM CST

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Hello from Iowa. Thinking of you often and wishing I could be there to help you. I hope you are finding ways to get some relief. Taking care of a very sick child has to be very exhausting and you need time to recharge. Anyone who complains about life's little problems should be required to read your web journals and then they would appreciate what they have so much more. Take care.

Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA USA - Sunday, February 15, 2004 8:18 AM CST

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Hi Lucas,
We wanted to let you know that we are thinking of you. We think your dog is so cute. We hope your feeling better soon and can go back to your school.
Love Cal and Nolan Mendoza
Mendoza <cynthiammendoza@msn.com>
Little Silver, NJ USA - Sunday, February 15, 2004 7:21 AM CST

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YO LUCAS!
WHAT'S UP? HOW IS SCHOOL? I LOVE THE PICTURES OF YOU! YOU LOOK FANTASTIC! YOU'RE IN MY PRAYERS.
LOVE,
RYAN LEHRKINDER
RYAN LEHRKINDER <LEHRKINDER@COMCAST.NET>
LITTLE SILVER, NJ USA - Friday, February 13, 2004 2:17 PM CST

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You would think that some of lifes struggles could hit someone else when your plate is already so full. I often wonder how it all works out in the end. I am thinking of you and hope next week, month gets just a bit easier. Love from Texas.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, February 12, 2004 9:57 PM CST

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Sam and Dave

We think of you daily.

Keep strong for our little hero.

Love from the Eastern end of the pond.

Mel and Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Thursday, February 12, 2004 3:09 PM CST

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We check on you every day. It seems if one thing is not bad enough, another comes along. We've hit several of those "bumps" also. Some days you feel like throwing in the towel, but we must keep fighting for our kids. We do what we think is best for them and keep pushing on. Take care, keep fighting. Thinking of you often.
Jeff Trimper <jtrimper@cms.maisd.com>
Stanton, MI USA - Wednesday, February 11, 2004 10:41 PM CST

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Miss you guys and think of you often...Hope you're enjoying having Ollie there. Hear he's having sympathy urinary problems...Such a considerate cat.

Kisses
Caryn <carynm@aol.com>
New York, - Wednesday, February 11, 2004 11:26 AM CST

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Hello Viscomis,

Love and kisses from the Cowans! We miss you and want to plan a visit very soon.

Thinking about you all of the time,


Cory, Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Wednesday, February 11, 2004 9:53 AM CST

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I can't even imagine how difficult it must be sometimes. I still remember Lucas on the trip hunting Uh-Gi-Oh ? cards and hotwheels. Lucas and his contagious smile and laugh. There seemed to be a bit of a mischievious look to it too. Makes me smile thinking about him that way.

My thoughts are with you always.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, February 9, 2004 1:54 PM CST

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Hi Breakfast Companion!

I didn't realise it was so long ago that I last wrote to you, so am sorry about that. But I ring Grandma several times a week and also speak to Mom when I can get hold of her, so know how you've been battling along with your various problems. You are such a brave little boy and we feel for you when you are in such discomfort. Uncle Eric and I hope that the hospital can regulate your various medicines which will bring you greater comfort.

I know you've got Uncle Russell's cat Oliver for a little while and do hope that you are enjoying him. Dad says that Abby loves him and perhaps when he goes back to Uncle Russell you will get a another one. They are such wonderful entertainment.

I hope you are enjoying your school and made some friends there. We think of you always and I look forward to speaking to Grandma and Mom to hear of your progress.

Lots of love to Mom, Dad, Abby and you. Big XXXXX


Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, England - Saturday, February 7, 2004 7:52 AM CST

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Just got in and wanted to check in...We are going tommorrow to Cherry Hill at 6am for a memorial service but will check in with you guys when we get back. You all are always on our mind and Lucas your strength is unbelievable!! Hang in there guys-we are here for you if you need anything!!!!!!!
Bobby, Donna, & Buddy Mitchell
B,D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, February 6, 2004 11:18 PM CST

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Keeping dear Lucas in warm thoughts and prayers.
Robin Bonney <rgbonney@suscom-maine.net>
Freeport , Me - Thursday, February 5, 2004 10:39 PM CST

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Hello From the Cowans!

Just a quick note to say we love you.
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Thursday, February 5, 2004 7:12 AM CST

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Dave and Sam

Sorry to hear that Lucas is in discomfort and I am sure that you are doing your very best as ever.

I hope your efforts are rewarded with happier times for Lukie.

We think about you daily.

Love as always from the eastern end of the pond.

Love to Abby as well.

Love

Mel and Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Thursday, February 5, 2004 1:57 AM CST

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I am on my way out the door but wanted to check in...ahhh sounds like things have been a little crazy!!Hang in there -I will "touch base" this evening with you guys!! If you need anything before then...well you know!!!!!!!
Have a good day at school Lucas!!
Hugs-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, January 29, 2004 7:26 AM CST

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Dave

Sorry about the car accident.

A little humour for you:-

Britain at its best:-

Entitled Hell did freeze over.

Britain a country at the north end of Europe used to cold and rainy weather.

Last Night flash of thunder and a snow blizzard hits London Ian is at his office 40 miles form home in Kent.He drives away from the office at 5:45PM a journey at that time of day takes one hour usually. But not yesterday, 5 hours???.

Why you ask?

Icy roads and 2 inches of snow the blizzard lasts for 30 minutes only, the result chaos. Why? no gritting lorries available to grit and plough the roads.The 120 mile round London orbital motorway grinds to a halt and becomes the largest car park in the world.This does not stop the drivers who fancy cruising down the hard shoulder at 70MPH in the snow????.

Dave we have them as well.

Should we have been prepared? why no as we were only given a one week warning of the weather to come.

Result Ian returns home at 11;00PM and virtually runs out of petrol. "Oh to be in England now that winter's here"

Also the famous cats eyes in the middle of the roads are not compatible with the snow machines.

We may be the mother of democracy but maybe someone else is the mother of common sense.

After all we did invent Mr Bean.

Today the sun is shining over glorious snow covered rolling hills and all is well again.

I hope this made you smile as I know things have been tough for you all but as Cory says you are people of great dignity and are therefore inspirational.

Hopefully the accident will bring you the new van sooner and good will come from bad.

Tell Lukie to keep smiling.

Please know we are with you all the way.

Good luck.

Mel and Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Thursday, January 29, 2004 4:50 AM CST

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Hello Again.

Dave, we are so sorry about your accident and hope you are doing well.

So many obstacles have been put in your way, yet you still maintain such dignity and courage. You really are an inspirational family.

Take care of yourselves! We love you,
Cory, Stephen & Jonah <coryandstephen@aol.com>
guttenberg, nj - Tuesday, January 27, 2004 8:51 PM CST

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Happy Birthday Sam!

Hi Lucas, Abby & Dave!

Congratulations on your new set of wheels. It looks like you will have an easier time getting around now.

We miss you! Hope you are all well.

Sending all our love to you guys!


Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Tuesday, January 27, 2004 6:34 AM CST

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Signing in to let you know I am thinking about you. I saw where your birthday was mentioned Sam. Happy Birthday. You guys continue to amaze me with your strength. Lots of love from Texas.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, January 26, 2004 12:59 AM CST

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Happy Birthday Sam.

Stephen has winged his way back to the USA.

We are also expecting snow.

Love to you all.

Mel and Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Monday, January 26, 2004 3:58 AM CST

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Lucas-
Another birthday in the house with snow on the way...enjoy the day staying warm and celebrating!!
We hope this upcoming week at school is good for you -keep strong!!
Hugs-
Bobby, Donna, & Buddy Mitchell
PS. HAPPY BIRTHDAY SAM-you young chick!:)
B,D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, January 25, 2004 11:34 AM CST

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Hi Lucas

Hope you are enjoying it back at school.It sounds that you are feeling more comfortable at the moment long so it should last.

Nice news about the new minivan that will be fun to go in when it arrives as well as making it easier for your parents to get out and about with you.

Uncle Stephen has been here with us this week seeing Uncle Bernard who is now home from the hospital after being unwell.He will be returning to the USA on Sunday so I am sure you will see him very soon.

Just to let you know Man utd are second and Arsenal my team are top by 2 points in the Premier League it is an exciting contest this year.

Remember we love you and your family so keep Smiling.

Auntie Mel and Uncle Ian

MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Friday, January 23, 2004 2:28 AM CST

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Checking in to say "Hi" and to let you that I miss hanging out...we've got to get our mother's together soon!!:)!!
Can't wait until next time- but I have to go right now and take a bath.
You are the best-High fives dude~
Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, January 22, 2004 6:34 PM CST

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Hi Lucas!

Hope you are having a good day today. Jonah and I have been home all week since he's had a bad ear infection and cold. I have been chasing Jonah all over the house with tissues trying to wipe is nose. Whenever he sneezes all over himself (you know what I mean) he comes running over saying "WET, WET!" Yuk is all I have to say!

We would have loved to come to see you since we are very lonely with Stephen in London all week.

Tell your Mum and Dad that Uncle Bernard is happy to be back home from the hospital.

We love you very much and send lots of schmutzy kisses!

Love,
Auntie Cory & Jonah (and Uncle Stephen sends love too) <coryandstephen@aol.com>
guttenberg, nj - Thursday, January 22, 2004 2:16 PM CST

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Dave

We did not know it was your birthday and we say many congratulations.Hope you had a great day.

One year older one year wiser yes?

Love to you all and big hugs and kisses to Sam, Lukie and Abby.

Love

Mel,Ian,Zelma,Bernard and Stephen who is here with us in the UK this week visiting Bernard who has not been well.
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Sunday, January 18, 2004 5:20 AM CST

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Lucas-
I hope school gets easier for you and that you start to get relief and comfort during your day. That great smile of yours makes any cold New Jersey day so much brighter and warms our hearts!! I hope you help your Dad blow out his birthday candles today for he is going to need help with all of them :)(just kidding Dave)!!!
Hugs& High fives to you from us-
Bobby,Donna & Buddy Mitchell

HAPPY BIRTHDAY DAVE!!!All our best to you and wishes for a wonderful day of celebration!!
B,D,& M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, January 16, 2004 7:42 PM CST

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I love the pictures. The struggles I know come and go through the minutes of the day, but the difficulty remains when you can't manage to get your child comfortable. My thoughts are with you in that way. I hope that a combination of things can be discovered soon to give Lucas some relief. Tell Lucas we're thinking about him and hope he feels better. Always with you in spirit.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Friday, January 16, 2004 12:54 AM CST

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Hi Lukie

Glad you went back to school and that the children welcomed you back.

Keep being brave and when you are up to it please send us one of those Lucas smiles that brighten up a cold London winter day.

We love you and your family as always.

Love Auntie Mel and uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Friday, January 16, 2004 10:05 AM CST

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Be brave, stay strong and keep believing.
Cindy
Albany, NY - Friday, January 16, 2004 8:24 AM CST

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I found your site from the Trimper's. We are here at Duke getting ready to return to New Jersey. Although with the weather there I don't know if that is a good thing. Our Ashleigh was diagnosed with Krabbe Leukodystrophy in June, she transplanted in August. We will be praying for you and your family. These are not the roads we would have chosen but one that has been chosen for us. With Hope, Michelle
caringbridge.org/nj/ashleigh.ryann
michelle gwin <moocow517@att.net>
mullica hill, nj usa - Thursday, January 15, 2004 11:20 PM CST

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Hi Lucas,
Well it's another snowy day. In Allentown we have about 5 inches, so there was no school for us. I don't know how much snow fell in Little Silver, but at least you were able to go to school three days this week. School is such a wonderful place! I'm sure it makes you feel good to be there. Something else that should make you feel good is that you are featured on the bulletin board in our hallway. We have been studying heroes and your picture is included!! We think of you all of the time and your family picture on your website is displayed during the school day on my laptop.
Prayers for a restful, painless day.
Your Friend,
Eileen Crompton
Eileen Crompton <ecrom489@aol.com>
Macungie, Pa USA - Thursday, January 15, 2004 3:54 PM CST

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Hey Lucas,
How are you? We are thinking of you on this snowy day! Hoping you are warm. Did you know you have awesome parents and a lovely sister! They care about you a whole lot! You are a lucky kid. Please say "hello" to everyone for us. See you around:)
Your friends,

The Lehrkinder's <Lehrkinder@comcast.net>
Little Silver, N.J. U.S.ofA. - Thursday, January 15, 2004 2:31 PM CST

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thinking of you...
-Buddy Mitchell
Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, January 13, 2004 7:23 PM CST

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Just checking in -I hope you all are getting some sleep at night!! I think of you so much during the day Lucas and hope you will be starting school again soon.
Hugs to each of you-not too close though for my stomach is out of sorts
so high fives instead- :)
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Sunday, January 11, 2004 9:09 PM CST

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Hi Breakfast Companion!

So Cinty-Lou didn't behave herself and take to the the family -you can't win them all, and perhaps it's best that she has now gone back to her original family. Sometimes animals are very unhappy when they are out of their normal surroundings although she was going to a wonderful home with you all.

You will be going back to school soon so that will keep you busy and am sure you can't wait to see all your friends there. I will be going into your website again when we return from holiday and I will be anxious to know how you got on. I was sorry though to hear that you have had to go back to the hospital a few times. I honestly think you ought to have a medal for being such a brave little boy. You are a champion in my eyes and always will be. Keep your chin up little one and keep the sparkle in your eyes.

Lots of love as always. You're constantly in our thoughts.


Auntie Penny and Uncle Eric <peneric@btinternet.com>
London , England - Sunday, January 11, 2004 9:31 AM CST

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So sorry to hear that Cindy Lou didn't work out, but even more sorry that poor Lucas had to suffer a lab mistake (They may call them "lab drops," but they didn't need to take it literally! :). Praying that Lucas will laugh again very soon and that all the infections clear.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Friday, January 9, 2004 8:48 AM CST

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I haven't been on for awhile but wanted you to know I'm always thinking about you. Sorry to hear Lucas is a little under the weather. Lots of love from Texas.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Thursday, January 8, 2004 4:07 PM CST

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Hi Everyone
Sorry to hear that Luke isn't doing that well. Our prayers are with him. He's one tough little kid!!! Sorry too about Cindy-Lou. I'm sure that it was a difficult decision but for the best.
Kathleen Wilson <rrollo732@aol.com>
Middletown, NJ - Thursday, January 8, 2004 1:33 PM CST

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Lucas

We are sorry that you have been going through so much this week and we know that your wonderful parents and sister are making the right decisions to make things easier for you.

We love you and send you our best wishes everyday.

We are sorry Cindy Lou has gone but I am sure this is for the best for all of you.

Keep smiling.

Love to you all.

Auntie Mel and Uncle Ian

MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Thursday, January 8, 2004 4:11 AM CST

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Lucas-
Our thoughts will be with you tommorrow and the days to come. You are constantly on our mind and in our prayers!!
We love you and hope you start feeling better along with receiving encouraging news from your doctors!!
Rest and relax...
We love you-
Bobby, Donna & Buddy Mitchell
B,D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, January 5, 2004 10:15 PM CST

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Hi Lucas

You have a good life and stay helathy. My family is worried about you. We hope you will get well soon. My Mom and Dad and my two sisters, Katie, and Jessie are having a problem with my six month old nephew. He crying too much at night. I never get sleep. I love you xoxoxo


T.J. xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxo
Crompton's class <ecrom489@aol.com>
Macungie, PA usa - Monday, January 5, 2004 2:23 PM CST

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Hi Luke,
I was just wondering if you and your family could come to Wescosville school and see us in person. I enjoy reading your web page each day, but I would love to actually meet you! I wonder if you like Transformers Armada. I got Unickron for Christmas. I went to Chuckie Cheeses and I got a tarantula and a slap hand that sticks to walls. Have you gone to Chuckie Cheeses? HAPPY 2004!

Sincerely, AARON RUCH
AARON RUCH/Mrs. Crompton <ecrom489@aol.com>
Wescosville, PA usa - Monday, January 5, 2004 10:15 AM CST

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Hi Lucas-
Sorry to hear you're not feeling well. I hope that changes soon. Keep believing and you'll kick MLD in the butt.
Be brave and stay strong.
Cindy Blanchard (Max, Maddie and Sam's aunt)
Albany, NY - Monday, January 5, 2004 9:53 AM CST

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Hi Luke's family,
My name is Austin and I am in fifth grade and I am ten years old. I am a new student in Mrs. Crompton's class.
How is your dog, Cindy-Lou? I hope you had a very happy Christmas and Hanukkah. My favorite subject is Chemistry. What do you like to do in school? I want to be a chemical engineer when I grow up. I love Harry Potter just like you do. What is your favorite animal?
Sincerely, Your friend Austin.
Eileen Crompton <ecrom489@aol.com>
Wescosville, PA usa - Monday, January 5, 2004 8:25 AM CST

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Lucas

Stay strong and resolute little fella and we are sure things will get easier for you.

Although we cannot be with you at this time we send our love always to you all.

By the way your team Man Utd are top of the Premier League in England.

Try to smile if you can.

Love auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Monday, January 5, 2004 7:32 AM CST

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Hello from Iowa. Thinking of you today and wishing I could be there to help you. Such a load you carry each day. Your love for Lucas and Abby is strong.
Michelle C. Golightly
Booneville, IA - Sunday, January 4, 2004 6:47 PM CST

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I am so sorry to hear about your awful week. I pray Lucas feels better and more alert soon. We think of you every day.
Jane Trimper
Durham, NC - Sunday, January 4, 2004 5:56 PM CST

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HI LUCAS IM SO SORRY YOU ARE NOT FEELING GOOD.YOU ARE SUCH AN INSPIRATION TO ME.I TRULY BELIEVE THAT GOD DOES NOT GIVE US MORE THAN WE CAN HANDLE.THERE MUST BE SOME REASON THAT GOD CHOSE YOU LUCAS TO CARRY THIS TERRIBLE BURDEN.I THINK AND PRAY FOR YOU ALL THE TIME.YOU ARE SO BRAVE AND STRONG.TAKE CARE AND GOD BLESS ALWAYS
CHRIS TIERNEY <CTIERNEY@KNIGHTTRADING.COM>
LITTLE SILVER, NJ - Saturday, January 3, 2004 11:13 AM CST

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Dear Lucas, Abby, Sam and Dave,
Happy New Year Wishes to you all. I was away rom home over the holiday and away from my computer. I was so anxious to visit your webpage. I am so sorry to hear that Luke is not feeling well. It seems none of us are able to avoid the germs this season. You are in my thoughts and prayers. Hopefully the warmer, milder weather will return so you can enjoy a walk with Cindy-Lou. Love and smiles, Eileen
Eileen Crompton <ecrom489@aol.com>
Macungie, PA USA - Friday, January 2, 2004 9:22 AM CST

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I'm sorry to hear that Lucas isn't feeling well since his new pump. I always think "allergy" because I have so many negative reactions to drugs myself. But whatever is causing his sadness, we will pray it away! Our Lord loves Lucas and does NOT want him to be sad. God bless!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper Country - Thursday, January 1, 2004 6:03 PM CST

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Lucas,
Stay strong and keep fighting. You'll get through this tough time.

Cindy
Cindy Blanchard
Albany, NY - Tuesday, December 30, 2003 9:11 AM CST

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Hi Lucas,

We're getting our gang ready for a visit to see you. Hope you are feeling up to the challenge of Jonah's attack on Cindy Lou. Wait until you see him with her, I know it will be funny.

Ever since Abby made the tunnel over the pinball machine at your house the last time we were over, Jonah has been having fun making tunnels all over the house. He even loves to crawl through our legs while yelling out "TUNNNNELLLLL". It's hysterical.

Anyway, good luck today. We're thinking about you and sending all of our love.

Can't wait to see you. Take it easy.

Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Tuesday, December 30, 2003 6:26 AM CST

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Happy Holidays and God Bless.
Mary Kiener, caringbridge.org/ia/sam
- Sunday, December 28, 2003 7:14 PM CST

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keep fighting lucas you are so brave. The pup is soo cute
Stephanie Veraldi and Gina Fabian <stuffer8@innsyscon.com>
Coram, ny usa - Friday, December 26, 2003 9:51 PM CST

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Lucas and family! Wishing you a peaceful and very Merry Christmas and Happy Hannukah. Our family celebrates both holidays too and we think we are very lucky to! Glad you are enjoying your little Cindy Lou.

The Bonney Family <rgbonney@suscom-maine.net>
Freeport , Me - Thursday, December 25, 2003 12:30 AM CST

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Happy Holidays! Checking on you each day. Wishing you peace this season. Love,
Jane Trimper <jatrimper@cms.maisd.com>
Durham, NC - Thursday, December 25, 2003 10:03 AM CST

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Merry Christmas to all of you at the Viscomi home!!!
Lucas- I can't seem to sleep tonight as I am patiently listening for the pitter~patter of reindeer, but you know like I do that I must go to sleep before he arrives with all the goodies. I will be stopping by tommorrow, if you are up for it, to see you and your family!! Can't wait....
Hugs, Holiday Kisses & all that stuff-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, December 25, 2003 2:01 AM CST

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To Lucas, Abby, Sam,David and Cindi Lou

Happy Holidays.

LONDON ENGLAND CHRISTMAS EVE

December 24th 2003 at 4:00PM GMT

Greenwich Meridian zero degrees longitude.

From the land where time began may a time begin for you of smiles, happiness and improved health for Lucas.

To our inspirational and courageous friends at the western end of the big pond.

Have a super holidays.

Love

Auntie Mel and Uncle Ian

MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Wednesday, December 24, 2003 10:01 AM CST

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Dear Lucas,

Just wanted to say Thank you for giving me the best Christmas present I could possibly have received this year.. seeing that beautiful smile of yours.

Give Cindy Lou a hug for me, oh yea, Mom, Dad and Abby too.. !! Have a great holiday and I will see you soon..

Love, Bonnie, Make A Wish
Bonnie Savickas <liberty312@yahoo.com>
Freehold, NJ USA - Tuesday, December 23, 2003 3:32 PM CST

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I hope you have a good Christmas and I hope Cindy-Lou doesn't get scared from Santa's reindeer. Wishing you lots of happiness for the holidays. Love, Nicholas

Hi Lucas! I hope you are feeling better. I heard you have a new puppy named after Cindy-Lou from the movie "The Grinch Stole Christmas". Have a merry Christmas and a happy New Year. p.s. I love you xoxoxoxo. Love, TJ


Crompton's class <ecrom489@aol.com>
Wescosville, PA usa - Tuesday, December 23, 2003 12:51 AM CST

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Lucas and family,
I want you to know I'm thinking about you and hope you have a good holiday season! The dog looks like just the right medicine to keep up you spirits.
Be brave and stay strong.
Cindy Blanchard (Max, Maddie, and Sam's aunt)
Albany, NY - Monday, December 22, 2003 4:21 PM CST

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Incredible family Christmas picture!! Luke, your Mom and Dad sure do know what's good for you. It's obvious from the pictures that your furry friend will give you lots of happiness. Dave, I got your message, and the class will look forward to your visit when you are able. We will post a message to you on Tuesday, our last day of school before the holiday.
Best wishes, Mrs. Crompton
Eileen Crompton <ecrom489@aol.com>
Macungie, PA usa - Monday, December 22, 2003 3:13 PM CST

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Hey Lucas...great holiday picture!! I'm glad you're feeling better. Keep hanging in there, the pup needs someone to learn from and no one better than a brave young man...Enjoy the holidays....a friend from Make a Wish
Jay Garibaldi
Chatham, NJ USA - Monday, December 22, 2003 1:33 PM CST

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Hi!

Well, we're back from London and anxious to catch up with you guys. Can't wait to see Cindy Lou. She's a beauty.

Lots of love,
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
- Sunday, December 21, 2003 6:49 PM CST

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Hi Lucas. My name is Michelle. I am Cindy Lou's breeder. I am so honored to know you. I just love seeing the photos of you and your family and Cindy Lou. She couldn't have a better brother than you. All of Cindy Lou's bichon family sends their barks and kisses to you and your family.
I am also a high school teacher Lucas. I shared your story with my students because I think you are a very brave and very strong young man. You are an inspiration. My students all say Hello to you. Have a wonderful holiday and thank you for giving our little girl, Cindy Lou, a great home.
Michelle Konik <dbichons@aol.com>
Centereach, NY USA - Saturday, December 20, 2003 7:34 PM CST

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HI,LUCAS I AM SO PUMPED FOR YOU THAT YOU GOT A DOG.DOGS ARE THE BEST AND SHE WILL BE SO FORTUNATE TO BE IN SUCH A LOVING FAMILY.YOU ARE IN MY THOUGHTS OFTEN AND I PRAY FOR YOU ALL THE TIME.MY SON CHRIS IS ALWAYS ASKING ABOUT YOU AND PRAYS FOR YOU EVERY SINGLE NIGHT.KEEP FIGHTING THE FIGHT LUCAS BECAUSE YOU ARE UNDER SPECIAL WATCH BY GOD.HAVE A GREAT HOLIDAY AND YOU AND YOUR FAMILY ARE ALWAYS IN OUR THOUGHTS.LOVE CHRIS TIERNEY AND FAMILY
chris tierney <CTIERNEY@KNIGHTTRADING.COM>
little silver, nj - Saturday, December 20, 2003 11:34 AM CST

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Congratulations on the new addition to the family. It looks like the perfect medicine. The picture is great. Everyone looks happy. Thinking of you and wishing you a happy holiday.
Joanne Rhode
Duke, - Friday, December 19, 2003 9:17 PM CST

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when my teaher (michelle Konik) told me what she was doing for lucas i was truely touched, Cindy Lou is adorable. I wish lucas best wishes and to have a great holiday season.
Stephanie Veraldi <stuffer8@juno.com>
coram, ny usa - Friday, December 19, 2003 5:10 PM CST

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Beautiful picture. You even made me want to go out and buy a dog. That in itself is a Christmas miracle. One dog at our house is enough. I know you are facing many hurdles, but Lucas sure looks great. Love to all.
Jane Trimper <jatrimper@cms.maisd.com>
Durham, NC - Friday, December 19, 2003 4:26 PM CST

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I love the new family picture and what an adorable dog! You are an amazing, strong family who continues to inspire me so much. Take care and best of wishes for the holidays and 2004!
Donna <www.caringbridge.org/ia/collin ldvolz@msn.com>
Earlham, IA - Friday, December 19, 2003 4:21 PM CST

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Love the DOG! and it is really appropriate that her name is Cindy Lou, after the Who in Whoville who was no more than two - and helped the Grinch see the real meaning of Christmas. I'm sure she'll bring you giggles and licks and lots of love. Unfortunately it's dad and mom who have to pick up the poops!!!
It's good to see you smile.
Auntie Caryn <carynm@aol.com>
New York, New York - Friday, December 19, 2003 10:39 AM CST

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Hi Lucas

Great photo of you the family and your new dog. It looks beautiful.

We are pleased to see that smile back and we hope you are getting more comfortable.

We are going out tonight with Auntie Cory, Uncle Stephen ,Jonah ,Auntie Zelma and Uncle Bernard for an Italian meal in Gants Hill. Auntie Cory, Uncle Stephen and Jonah will be flying back to the USA tomorrow and will be back tomorrow evening in New York.

It has been great to have them here and Jonah has been great fun.

I am sure they will be round to visit you very soon.

As we now approach this special season of the year we wish you all a Happy Hanukah and a Merry Christmas and may 2004 bring you a better year Lukie and more smiles.

Love to you all

Auntie Mel and Uncle Ian


MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Friday, December 19, 2003 2:15 AM CST

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To Lucas and His Family,
It has been a long time since I have written. I remember Lucas and your family in our prayers as I do so many other MLD families. You were there a year ago to help us. Grandma, Pamela, help me on some dark days and now I have received a phone call from the Joiner Grandma, Loreeta. Unfortunately, the cycle of new people,who are learning about MLD continues. It has been a difficult year, but we are encouraged that things are going to get better. We will never give up the battle.
The family photo was so nice to see. I remember keeping up with Maddie and Sam last year at the Ronald McDonald House, and how much fun they had with Abby. In fact, down in Durham, on the refrigerator, is a letter on pink paper that Abby sent to Maddie.
I hope the holidays bring peace to your family and good health.
Sending a hug from Michigan, Gramma Claudia, Jane Trimper's mom.
Gramma Strawberry <rhodeberry@aol.com>
Chesaning, MI - Wednesday, December 17, 2003 7:17 AM CST

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Hi all,

Just checking in. Glad to hear you made it home and were able to get a tree as a family. I hope that Lucas continues to get looser and more comfortable. Tell Lucas HI and that I am thinking about him. I am sure Nathan sends a "What's Up" from heaven. Thinking of you all.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Tuesday, December 16, 2003 10:19 AM CST

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Hi Breakfast Companion!

How's my little companion today? I hope you're feeling better as each day passes and makes you stronger. I had a long talk with Mom yesterday and she said you were making good progress although the rash was being troublesome. Hopefully that will disappear soon and you'll be feeling far more comfortable.

I read that you've got your Christmas tree now and I'm sure that all the decorations that are going to go onto it will be lovely. Enjoy the holidays and keep up the good work with your legs and arms. I'm hoping to hear that you've managed to raise your high fives with your left arm. That will be lovely to hear.

Grandma says you will be picking up the dog soon and that will really be an exciting day for you. I hope it doesn't do what Sherlock used to do with Christmas trees. He used to jump up on them and knock them down. I always had a good laugh when I heard that 'cos as you know I'm potty about cats.

Keep up the good work and keep on laughing. Laughter is a good healer.

I will write again soon but in the meantime Uncle Eric and I send our love to you as always and you know that you are always in our thoughts.

Bye for now.
Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, England - Sunday, December 14, 2003 7:06 AM CST

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Hi Lucas

LONDON ENGLAND SUNDAY AM 10:45AM 14/12/2003

We are very glad you are home and back with the family.

It sounds like the operation has gone well and you are improving.

I am glad you have picked out your Christmas tree and will have it in the house this Christmas.Also to be home with your beautiful loving sister Abby and your wonderful parents.

How lucky you are to live in a town called Little Silver with so many kind people to help. Especially the fire department who have been incredible.

Just to let you know we picked up Auntie Cory, Uncle Stephen and Jonah yesterday from the airport and we are all having lunch to day at Auntie Zelma's.

Jonah kept us busy yesterday as he was running around all afternoon with his toys and we had to watch 4 episodes of his favourite BBC children's programme the Fimbles.

All of us were falling asleep but Jonah has not yet understood the concept of jet lag.

As we are all together as a family today, Auntie Zelma, Uncle Bernard, Auntie Cory, Uncle Stephen and Jonah all send their love to you.

From the eastern side of the great pond we say Happy Chanukah and Merry Christmas.

Love to you all

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Sunday, December 14, 2003 4:47 AM CST

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Thinking of you. It's was good to hear that Lucas was more alert and his pump is in better shape this time. I know he must feel better. Thinking of you and hoping things go as planned to get home.
Rhonda Frachiseur http:\\www.caringbridge.org\tx\nathan <brawnygrl@yahoo.com>
Allen, TX - Saturday, December 13, 2003 1:33 PM CST

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Hi Lucas,
my name is Sarah and my family are friends of the Lang
family. I am 8. I hope you feel better.
Sarah Bonney <rgbonney@suscom-maine.net>
- Friday, December 12, 2003 8:08 PM CST

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Lucas-
I was so excited to speak to mom and get updated on your latest acheivements!! I am going to try to come over tommorrow to hang out if you are ready for some fun!! Can't wait to see you..
Hugs-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
eatontown, NJ - Friday, December 12, 2003 7:23 PM CST

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Hey Lucas, I heard your getting a dog! That sounds exciting! Happy Holidays:)We're always thinking ABOUT YOU. You are in our prayers! Love, The Lehrkinders
Ryan Lehrkinder <Lehrkinder@comcast.net>
Little Silver, New Jersey United States of America - Friday, December 12, 2003 5:24 PM CST

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Hi Lucas

We hope that you make it home before the weekend.

It is great news that the smile has returned and it has beamed itself across the great pond to brighten up a dark rainy London morning.

We are very happy to hear that the treatments are helping and we know with the medical staff and your wonderful parents and sister you will be made more comfortable.

We are picking up Auntie Cory and Uncle Stephen and Jonah on Saturday morning at London Heathrow airport and we are looking forward to seeing them and spending time together.

Remember we love you and you are always in our thoughts.

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Thursday, December 11, 2003 1:49 AM CST

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Hey Lucas!

We hope you'll get to go home tomorrow! Glad you're feeling better! We definitely want some of those smooches when we see you!

The 3 of us are off to London on Friday and we will be thinking of you every day! We will see you when we get back.

Love you lots!
Auntie Cory, Uncle Stephen and Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Wednesday, December 10, 2003 10:51 PM CST

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Think of you often. Take care.
Mary Kiener, caringbridge.org/ia/sam
- Wednesday, December 10, 2003 10:13 PM CST

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Thinking of you and hoping you'll all be at home again really soon. Lots of love,
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Wednesday, December 10, 2003 8:19 AM CST

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Hi Luke!!

We hope and pray that you continue to feel stronger and more relaxed with each passing day. The snow sure did come down yesterday and today. It looks pretty but makes getting around horrible. I hope that the road crews do a quick and efficient job so that your Dad can join you and your Mom soon.
What a great treat your new dog will be for you when you get home. They sure are a lot of fun.
Gracie and Julia send their hello's and hope to visit with you and Abby soon.
Love, The Wilsons, Kathleen, Robert, Grace and Julia
Kathleen Wilson <rrollo732@aol.com>
Middletown, NJ USA - Saturday, December 6, 2003 7:51 PM CST

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You guys are making the right decisions. Hopefully the pump will help Lucas greatly. We check on you daily and think of you often. Keep kicking!
Jane Trimper
Durham, NC - Saturday, December 6, 2003 6:33 AM CST

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Lucas-
You are so incredibly brave!! You rest now and enjoy all that TLC especially now with Mom being "snowed in" at the hospital with you. :) Stay nice and toasty but with no fevers!! We are so glad the procedures went well and hope your discomfort gets less and less as the minutes pass.
We think you truly are "tops"!!!!!!!!!!
All our love-
Bobby, Donna, & buddy Mitchell
B,D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, December 5, 2003 8:43 PM CST

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Hi Lucas

LONDON ENGLAND 10:50 AM FRIDAY 5th December.

We are monitering you everyday from this side of the great pond.

We are sorry you were in pain and we are sure all this suffering will bring you some relief long term.

Please understand that you are an inspirational little boy of courage, moral fibre and tenacity in fighting to get better.

We send you our love and support always.

Please know we are here for you at all times.

May the next 8 days bring you the ability to smile again.

Love to you all and to your wonderful family.

Love

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Friday, December 5, 2003 4:49 AM CST

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Hey Lucas,

Sorry about your tough day. You've been through so much and we wish we could make all your pain go away.

We are sending you lots of love and we want you to know that we are thinking about you all the time.

Looking forward to seeing your sweet smile very soon--maybe this weekend if it's not too snowy!

Love ya kiddo!
Auntie Cory, Uncle Stephen & of course, Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Thursday, December 4, 2003 11:06 PM CST

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Lucas, I can't tell you how sad I am to hear that you came out of surgery in pain. You are one tough guy and I know that this will pass, but it is still a grief of mind to me. I will pray that this goes away soon and that you won't remember any of it. God bless you, sweet Lucas! You are an awesome kid!
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper supporter - Thursday, December 4, 2003 10:58 PM CST

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Hi Viscomi family, We've been thinking of you all day and wondering how things have gone. I have checked your site a few times for updates. I believe that you didn't count on 8 days in the hospital. Hopefully things will only improve from here on in. Let me know how we can help you. We love to have Abby here. You guys are in our prayers.
Lots of love, The Balto's
Cathy Balto <cathybalto@aol.com>
Little Silver, NJ USA - Thursday, December 4, 2003 9:44 PM CST

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Lucas-
Just checking in ...big hugs to you and your family too!! We thought about you all day and so hope everything went well!! We will be calling soon to find out how you are!!
All our love and the fun stuff too (high 5's, thumbs up and so on)-
Bobby, Donna, & buddy Mitchell

B,D,& M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, December 4, 2003 7:55 PM CST

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Dear Friends,
It is 3:00pm on Thursday and hopefully Lucas is resting from his surgery. At 1:00, we began thinking good wishes for you all as we drew pictures for Lucas. A package will be in the mail today for you. Be brave and know that many people care about you. We remain your faithful readers,
Mrs. Crompton's class
Eileen Crompton <ecrom489@aol.com>
Wescosville, PA usa - Thursday, December 4, 2003 2:00 PM CST

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Always thinking about you and hoping for the best. I hope this next surgery is helpful. Continue to fight! We think of us everyday.
Joanne Rhode
Duke, - Thursday, December 4, 2003 9:22 AM CST

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Hey Lucas!

We just love the new photos! We are thinking about you today and sending lots of love. Hang in there!

We love you lots and lots and lots!
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Thursday, December 4, 2003 9:07 AM CST

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I wanted to call before tommorrow but now it is too late!! At this time of night I hope you and your parents are tucked into bed resting for the busy day ahead of you. I had to take Mitchell to the walk-in clinic for he has a bad cold with nasty ear infections...then off to the pharmacy we went for medication!! Mitchell was not too happy with the taste of the medication and I think he said "uck"...if not- his face surely did!!!!!!!!
I will be thinking of you tommorrow, as I so often do, but with extra "well wishes" sent your way!!
Stay strong and I look forward to seeing that great smile of yours real soon!!
Big Hugs, High Fives, & all that mushy stuff-
Donna aka "Do-do"
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, December 3, 2003 9:11 PM CST

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Hi Lucas it's Aaron I'm sorry that you have to have surgery. P.S. Merry Christmas!

















Eileen Crompton <ecrom489@aol.com>
Wescosville, PA usa - Tuesday, December 2, 2003 2:26 PM CST

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Hi Luke It's me Jeremy Silvius in Mrs. Crompton's class. I heard that you're geting a dog I have 5 dogs and 13 cats.

GOOD LUCK WITH YOUR SURGERY ON THURSDAY!
JEREMY <ecrom489@aol.com>
Wescosville, PA usa - Tuesday, December 2, 2003 2:05 PM CST

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Hi Breakfast Companion!

It was lovely to see you laughing so much with Uncle Russell, Abby,Mom and Dad AND Ollie the cat. What a lovely photograph it made and what a handsome pussycat. Looked a bit like Sherlock don't you think?

Uncle Eric and I hope so much that this next surgery you are having on Thursday will be successful and we're keeping
our fingers crossed that this will be so.

I was so glad to hear that the Yu-Gi-Oh sticker book arrived together with the Barbie book for Abby. I hope you had some fun with the Yu-Gi-Oh. I have to confess I know absolutely nothing about this game and when I next see you perhaps someone could explain it all to me 'cos I'm a silly old auntie and obviously too old!!

Lots of love and kisses, and Uncle Eric and I will be thinking of you all the time on the 4th. Will write again soon.



Auntie Penny <peneric@btinternet.com>
London, UK - Monday, December 1, 2003 2:19 PM CST

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I can't tell you how good it was to see Lucas in these pictures. All of you look great, in spite of, all that you go through every day. Thinking about you and hoping surgery goes well. With you in spirit.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <brawnygrl@yahoo.com>
Allen, TX - Monday, December 1, 2003 1:14 PM CST

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Hi Lucas

I hope all goes well this week with the surgery and the
procedures.

Love to you all and keep smiling.

Aunite Mel and uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Monday, December 1, 2003 1:50 AM CST

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Hey Lucas, How are you? I'm always thinking of you:)I enjoyed looking at the pictures. Good luck at the hospital. I hope you get home as soon as possible! Say hi to your mom,dad,and Abby for me please. You're in my prayers. Your friend, Ryan Lehkinder
Ryan Lehrkinder <Lehrkinder@comcast.net>
Little Silver, NJ USA - Sunday, November 30, 2003 2:37 PM CST

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Dear Lucas,
Happy Thanksgiving.
Hope you liked the cubs hat.
From, Matthew
Matthew Raybon <jraybon22@comcast.net>
- Sunday, November 30, 2003 8:08 AM CST

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Hi all

That smile as infectious as ever Lukie!!!

So lovely to see happy photos of you all, you have made our day!

Keep happy and I hope you had a great thanksgiving.

Mel and Ian


MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Saturday, November 29, 2003 3:56 AM CST

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You all look like you were having a blast...and the couch looks familiar!!:) I am glad you guys were able to spend time together and hope Thanksgiving was lots of fun!!
Hugs-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, November 28, 2003 10:27 PM CST

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Thinking of you and praying that God continues to give you the strength to handle all you have been giving. Happy Thanksgiving.
Mary Kiener, caringbridge.org/ia/sam
- Thursday, November 27, 2003 8:35 PM CST

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Sam,Dave Lucas and Abby

From the Home of soccer,Harry Potter and the Rugby world
champions.

London England 4;40PM 26th November 2003.

Happy Thanksgiving to you all and our very best wishes.

Sorry we cannot make it to the USA this year for this
festival.

Big Hugs to our brave Lukie.

Love

Mel and Ian Russell
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Wednesday, November 26, 2003 10:42 AM CST

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Lucas-
Just checking in on you ...big turkey day is coming soon!!
Have fun in Pennsylvania at your Aunts and hopefully we can swing by for a visit soon!
Hugs, high fives & all that other stuff-
Bobby, Donna & Mitchell
B,D,& M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Tuesday, November 25, 2003 10:09 PM CST

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Hi Lucas, Abby, Dave, and Sam,
Thanks so much for coming to visit all of us at MRT this past Sunday. You are an incredibly special family and you constantly remain in my prayers.
Judy
Judy Raybon <jraybon22@comcast.net>
- Monday, November 24, 2003 9:22 PM CST

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I think of you every day. I laugh when I hear you are doing well, and cry with frustration when I hear of the discomfort and restlessness you feel. I laugh and cry at the same time when I hear stories about how your neighbors, friends and family rally together to show how much you are loved and cared for. I want you to know I love you too...so much. I miss your face and your smile. And though I may not be around as much as I used to be, I want you to know that you are a permanant etching on my heart, and I have tremendous faith that you will come through this, you will beat this ridiculously stupid disease, and we will all hear your voice again one day.

I love you little man
Auntie Caryn <carynm@aol.com>
New York, - Monday, November 24, 2003 11:02 AM CST

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Hi Lucas

London Monday 24th November 2003.

Home of SOCCER AND HARRY POTTER and since Saturday Home of The Rugby World Champions England.


Glad things are a little easier at the moment.

I hope Yugi proves a welcome and fun addition and brings you much comfort and joy.

How great of your temple to shower you with gifts.

Good luck stay strong and keep smiling.

With love always

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Monday, November 24, 2003 4:42 AM CST

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Hi lucas, I was thrilled that things are getting better for you.We have been thinking and praying for you all the time.I will never forget how loving and caring you were to my son Chris.It takes a special person to go through what your going through.I envy your courage and strength,and you have been a great example for all of us Lucas.I will alway's have you in my thought's and prayer's. Love Chris Tierney and Family.
Chris Tierney <ctierney@knighttrading.com>
Little Silver, NJ - Saturday, November 22, 2003 3:27 PM CST

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Lucas, I have been thinking about and praying for you, knowing that you are fighting with all you have to overcome MLD and show the world that you will win. I have so much faith that the Lord is giving the knowledge to researchers that will put an end to this horrible disease forever. In the meantime, He is giving us an opportunity to watch a miracle unfold in your life, and in Max, Maddie, Sam, Joe, Katelynn, Kendall Leigh, and so many of our MLD friends. We know that you will not give up hope, and neither will we. Praying and thanking the Lord for what He will do for you, Lucas.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI Trimper supporter - Friday, November 21, 2003 5:05 PM CST

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Just checking in ...still can't visit as I am having trouble shaking this cold of mine but you have not left my thoughts!! I miss you guys...HUGS to all of you-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ USA - Tuesday, November 18, 2003 5:29 PM CST

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Hi All,

It was so good to read of the progress Lucas has had in the last week. I know it must be a relief to see Lucas smile. I remember how cute Lucas was when he grinned from ear to ear, especially when he knew he was being mischievious while you watched. That is a picture worth keeping. Thinking of you always.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
Allen, TX - Tuesday, November 18, 2003 9:50 AM CST

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Hi Lucas, I wanted to tell you about my trip to swim with the dolphins. It was fun! The dolphin's name was Jenny. I also got to see Mickey Mouse and I saw a lot of 3D movies. But one 3D movie was a 4D and it was called Shrek's 4D. It was very, very cool! The one 3D movie was with music and was cute with Disney songs. The songs were Be Our Guest, Whole New World, and a song from The Little Mermaid. Maybe someday you will be able to visit Disney, too.
Mrs. Crompton's class <ecrom489@aol.com>
Macungie, PA usa - Tuesday, November 18, 2003 9:22 AM CST

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Dear Lucas,
I sure hope that you stop getting the rashes. I also hope this is your last surgery for a while.
Your friend, Taylor
Mrs. Crompton's class <ecrom489@aol.com>
Macungie, PA usa - Tuesday, November 18, 2003 8:56 AM CST

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Thinking of you all often. Praying for that miracle. You are so strong and such loving parents. God bless you all.
Deb www.caringbridge.com/mn/ajtoivola
Gilbert, MN - Monday, November 17, 2003 9:14 PM CST

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Hello from Iowa! Just checking on my favorite New Jersey family.

Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Monday, November 17, 2003 8:20 AM CST

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Dear Sam and Dave,
As I read your Sunday update this morning, I am moved as always. You always seem to be comforting your readers, and I am gripped with emotion and awe as you continue with life's challenging journey. Thank you for allowing others into your personal thoughts and teaching us the humility that we somehow often ignore. It is not by luck that Luke and Abby have you as parents, but by His plan.
With love and respect!
Eileen
Eileen Crompton <ecrom489@aol.com>
Macungie, PA usa - Monday, November 17, 2003 7:05 AM CST

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Hi Lucas

Glad you are feeling better today and the smiling and laughter has returned.

Keep up the good work.

Love Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Monday, November 17, 2003 1:52 AM CST

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So thrilled to hear that Lucas is feeling better. We are smiling from ear to ear that things are improving for you. Praying that the next surgery is smooth sailing. Joshua sends hugs and wet kisses.
Erica, Steve, and Joshua Gendel <sgends@comcast.net>
Caldwell, NJ - Sunday, November 16, 2003 7:38 PM CST

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I am happy to hear that things are a little brighter for your family! God will guide you! Prayers for a little more strength each day.

Penny Barber <barber1@cmsinter.net>
Stanton,MI, - Friday, November 14, 2003 5:33 PM CST

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It's so good to see the update. I am so glad Lucas is doing a bit better and he can go for the pump and perhaps get loosened up again. Good luck, my prayers are for success and some better days.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
Allen, TX - Friday, November 14, 2003 11:18 AM CST

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Thinking of you and sending good wishes your way. Keep up the fight Lucas! We care about you and send our love and prayers from North Carolina.
Joanne Rhode (Max, Maddie and Sam's Aunt) <jrhode@vcs-k12.net>
Duke, - Thursday, November 13, 2003 8:06 PM CST

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Hi Lucas

Good luck with the surgery we are routing for you.

Keep smiling.

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Thursday, November 13, 2003 12:12 AM CST

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Thinking of you all and keeping you in my prayers.
Donna <ldvolz@msn.com>
Earlham, IA - Thursday, November 13, 2003 0:15 AM CST

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Hey Lucas, I'm a member of the temple you go to. I was wondering if you'd like to see some of the children's books we've been making in high school. Glad to see you're improving!
Jay Michaels <jmichaels@comcast.net>
oceanport, nj USA - Tuesday, November 11, 2003 10:35 AM CST

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Hi Lucas!

Stephen, Jonah and I had such a great time with you guys on Sunday. Abby really kept Jonah busy running around and hiding in the tents she made. You never know, if your Mother keeps finding us houses to look at, we might be your neighbors some day! We would love that!

Hang in there. We will visit again very soon.

Lots of love,
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ 07093 - Monday, November 10, 2003 9:46 PM CST

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Just checking in on you and so glad to hear you have some of your "spunk" back. I can not visit right now for I am sick with a cold and have been exposed to way too much at work!! But...I will not stop thinking about you or how much fun we will have when I finally can. In the meantime, keep "busting you families chops" with that great sense of humor of yours!!
Big Hugs, Hive fives, and all that mushy stuff-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Monday, November 10, 2003 6:45 PM CST

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Hi Lucas

HOME OF SOCCER AND HARRY POTTER MONDAY 10th NOVEMBER 2003

Glad you had your family and friends round and that you are not in pain.

Keep that smile and you will have the strength to fight on.

Dave thanks for the great words at the end of the update we concur.

Have a good week and keep smiling.

Also we send our best to your friends the Trimpers in their battle.

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Monday, November 10, 2003 4:19 AM CST

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I know things are tough, but you GOTTA BELIEVE we're going to beat this terrible disease! Thinking of you always! Keep fighting Lucas! Hi Abby, I like how you're keeping your brother happy!
Jeff Trimper <jtrimper@cms.maisd.com>
Duke, NC USA - Sunday, November 9, 2003 9:29 PM CST

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Prayers for Lucas and for strength and guidance for Mom and Dad. Know that you are in our thoughts and prayers."Cast all your anxiety on him because he cares for you" 1 Peter 5:7
Barbers <barber1@cmsinter.net>
Trimper town, - Friday, November 7, 2003 5:44 AM CST

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Dear Lucas,
I'm really glad you are out of the hospital. We are going to send some pictures of our class, classroom, and the playground sometime soon. Do you like rocks? I do.

Taylor
Eileen Crompton/Taylor <ecrom489@aol.com>
Macungie, PA usa - Thursday, November 6, 2003 11:23 AM CST

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Hi Lucas,
I hope you feel better very soon and I hope you had a good time going trick-or-treating. I bet it was very fun! I hope you are healthy soon.
Jacob from Mrs. Crompton <ecrom489@aol.com>
Macungie, PA usa - Thursday, November 6, 2003 9:43 AM CST

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Wish to praise and encourage you too as God has seen fit to provide Lucas with the right set of parents and sister to see him through his ordeal. Even though I don't know you all personally you are ever in my thoughts and prayers. Hang in there!
Robin Bonney <rgbonney@suscom-maine.net>
Freeport, Me - Wednesday, November 5, 2003 7:21 PM CST

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Thinking of you always. Hoping the little man feels better each day, and this is just a small bump in the road.
Caryn <carynm@aol.com>
New York, - Wednesday, November 5, 2003 10:27 AM CST

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Hi Lucas

Glad you are home in your own surroundings and getting out and about a bit.

I hope the infections wane and you get more comfortable soon.

Love to your great parents and wonderful sister.

Love you always.

Auntie Mel and Uncle Ian


MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Wednesday, November 5, 2003 9:41 AM CST

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Hi Lucas I just wanted you to know I will be swimming with the dolphins, it will be fun :signed TJ p.s I am so glad you are home.
TJ/EILEEN CROMPTON <ECROM489@AOL.COM>
MACUNGIE, PA USA - Tuesday, November 4, 2003 8:40 AM CST

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Hi Lucas and Family~
I know you must be happy to be home and to have Lucas home with you all. What a blessing he is.
I'm Gloria from Smile Quilts. It's nice to meet you. I want to invite you to Smile Quilts so that we can make a virtual quilt for you. Just click on the above graphic and it will lead you to the instructions. We're hoping to bring a smile to that pretty face. Of course you will be in my prayers.

Big Hugs,


Gloria <SimplicityMD@comcast.net>
Owings Mills, MD USA - Monday, November 3, 2003 12:04 AM CST

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Checking in and thinking of you all.
Donna V. <ldvolz@msn.com>
Earlham, IA - Monday, November 3, 2003 8:22 AM CST

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Thinking of you.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
Allen, TX - Monday, November 3, 2003 8:07 AM CST

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Luke, Abby, Sam and Dave,
25 heads were bowed in prayer yesterday in Kindergarten Sunday School as we spoke Luke's name. We hope you your family is feeling the love and well wishes from our class.
So happy Luke is home now and what a blessing little Abby is to her big brother!
Love, from Mrs Crompton's Sunday school students
Eileen Crompton <ecrom489@aol.com>
Macungie, PA usa - Monday, November 3, 2003 7:28 AM CST

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Lucas-
Just checking in ...tried to call Mom but got the answering machine. I hope you are feeling better!! I will try to stop in for a quick visit this week for I miss seeing you !
Hugs, high fives & all that stuff-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ USA - Sunday, November 2, 2003 7:07 PM CST

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There truly is no place like home...keeping you all in our thoughts and prayers.
Mary Kiener, caringbridge.org/ia/sam
- Saturday, November 1, 2003 4:01 PM CST

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Hi Lucas

Glad you are home and back in your own room.

What a tonic your sister is, keeping you alert and attentive.

Keep fighting and smiling.

Love to you all.

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Saturday, November 1, 2003 2:08 AM CST

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Greetings,
First time visitor here.. came via the Trimper website. Praying to God for complete healing, and peace for your entire family
A Trimper fan <fisherman@chartermi.net>
Chesaning, MI - Friday, October 31, 2003 6:08 PM CST

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I am SO glad to hear that Lucas is home again. You all remain in my thoughts and prayers.

Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Friday, October 31, 2003 2:41 PM CST

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Thinking of Lucas and your family. I'm glad to hear that he's home. Keep fighting and stay strong.
Cindy
Cindy Blanchard
Albany, NY - Friday, October 31, 2003 1:17 PM CST

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Dear Lucas,
Hope you are feeling better and that is great news that you can come home to your ultra cool room. Keep smiling cutie. We are all thinking of you and your family.
Love, Sandy Tierney

The Tierneys <sandygtierney@aol.com>
Little Silver, NJ - Friday, October 31, 2003 10:23 AM CST

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Praying for less pain and commotion for Lucas and strength and guidance for Mom and Dad.
The Barbers <barber1@cmsinter.net>
- Friday, October 31, 2003 6:07 AM CST

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Lucas,Abbey,Samantha&David, Please know that you are in our thoughts & prayers, you,re all so brave! We send love & healing,
Bill & Elaine Cannan <bcnco@optonlin.net>
- Thursday, October 30, 2003 8:52 AM CST

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Lucas-
I have been thinking about you so much. I will call Mom tommorrow to see that you made it home tonight safely and as planned. I am so sorry to hear you had use your super strengths to "work through the night" after surgery!! You are such an incredible young man, Lucas. We are totally overwhelmed by the unbelievable amount of strength you have in handling all these things you've gone through!! Your spirit is unmatched by anyone we know and we just love you ..
Hang in there and huge hive fives for all you have done-
"You simply are the "best""!!!!!!!!!!!!!
Love-
Donna
ohhh yeah- Bobby & Buddy Mitchell too!! :)
Bob, Donna, & Mitchell Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ USA - Wednesday, October 29, 2003 6:59 PM CST

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I can't imagine how frustrating it must be knowing Lucas suffers so much at times. It make my heart ache. My thoughts are with you, as I know how long and difficult the days can be. Lots of love.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
Allen, TX - Wednesday, October 29, 2003 7:37 AM CST

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Hi Lucas

Keep fighting our little hero.You are inspirational keep it up.

You have many people batting for your side.

Glad you will be home in familiar surroundings again.

We love you.

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Wednesday, October 29, 2003 2:50 AM CST

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Praying for comfort, peace and some happy times for you and your family, Lucas. Hang in there everyone.
The Bonney Family (friends to Pat Lang) <rgbonney@suscom-maine.net>
Freeport, Me - Tuesday, October 28, 2003 8:28 PM CST

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So much sorrow and sadness. Lucas, please find peace. Know that you are loved by many.
Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo@hotmail.com>
- Tuesday, October 28, 2003 8:07 PM CST

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We love you Lucas! So glad you are going home tomorrow. We bet you will feel better when you are in your own bed. Hope to see you very soon.

Hang in there sweetheart.
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Tuesday, October 28, 2003 7:38 PM CST

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Please know how much we care and hope Lucas is feeling better soon. We think of you often. Keep up the fight Lucas!
Joanne Rhode
Duke, - Tuesday, October 28, 2003 6:00 PM CST

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Thinking about you and hoping things are getting better for Lucas.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
Allen, TX - Tuesday, October 28, 2003 9:16 AM CST

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Dear Lucas,
I hope you are feeling better and tell Abbey that its going to be ok. Lucas's Dad I would like to have you visit us some day.
Your friend,
Jeremy
jeremy/Mrs. Crompton's student <ecrom489@aol.com>
Wescosville, PA usa - Tuesday, October 28, 2003 9:14 AM CST

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You are all being remembered in prayer by another of the "Trimper Troopers."
Sending good thoughts your way--------
Linda Warner <LAMSWarner@AOL.com>
Swartz Creek, MI - Tuesday, October 28, 2003 1:56 AM CST

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Just wanted you to know I am thinking of you. Take care and God Bless.
Mary Kiener, caringbridge.org/ia/sam
- Monday, October 27, 2003 4:28 PM CST

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Lucas,
Just wanted you to know that we think of you always, we are so sad to hear of the infection and will pray for a swift recovery so you may go home soon. We check your webside daily and continue to pray for you always. Love always, Uncle Frank, Aunt Sheila and Lindsey Rose :)

Sheila Preston
Northampton, PA - Monday, October 27, 2003 11:55 AM CST

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Prayers for your family!
Chad,Penny,Ryah and Rylie Barber <barber1@cmsinter.net>
Stanton, MI - Monday, October 27, 2003 6:34 AM CST

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Lucas-
Just checking in to see how the procedure went and how you are feeling?!?! We have been thinking about you all day and sending you lots of positive energy for strength and quick recovery from this "bug". When you are up for it -we are ready to do some more bowling!!
Rest up -
Hugs, High Fives & all that other stuff-
Bobby, Donna & Buddy Mitchell
B,D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ USA - Sunday, October 26, 2003 7:38 PM CST

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Hi Breakfast Companion!

Uncle Eric and I were so sorry to hear that you have to have the pump removed because of the nasty infection. You are such a brave little "companion" and we feel for you so much. I know your determination will get you though this setback but because you are so brave you will be smiling again very shortly.

Grandma rang me this morning to tell me that you had to have another operation and I will speak to her this evening to find out how it all went.

We think of you every moment of the day and hope all will be well.

Lots of big hugs and kisses and lots and lots of love.


Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, UK - Sunday, October 26, 2003 9:41 AM CST

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Thank you so much for the updates. I keep checking hoping for the latest news. Thank you. Prayers will continue. He is such a fighter. On top of everything, you have such tough decisions to make. I know you will make all the right ones about Lucas and his treatments. Thinking of you all day.
Jane Trimper
Duke, NC - Sunday, October 26, 2003 7:55 AM CST

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Sam and David

I know things have been very tough for you the past week re the superbug scare and we are glad they have diagnosed the problem and can start to rectify the situation.

As ever we send you our love and support and tell the little hero to keep smiling and his strength will see him through.

Love to you all.

We are thinking of you daily.

Love

Mel and Ian

MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, united kingdom - Sunday, October 26, 2003 6:58 AM CST

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Dear Sam and David,
Lucas will continue to be in our prayers daily...especially right now.
Stay strong,
Don and Marcia Trimper
Duke/Charlevoix
Trimpers <mtrimper@freeway.net>
Duke/Charlevoix, - Sunday, October 26, 2003 6:43 AM CST

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I've been checking on Lucas off and on since the Trimpers alerted us to him, but I don't believe that I've ever written. We are praying for him and praise the Lord for the good news about the superbug. I'm praying in agreement with Jane that the meningitis will not happen, and that Lucas will be even better for having gone through this - after all, the ways of the Lord are amazing! My brother-in-law just got off life-support from pneumonia a few days ago, and the crisis actually healed some other areas that he has been dealing with for decades. You just never know how good can come out of bad for those who love the Lord!

God bless Lucas as he continues his courageous battle. Shalom.
Carolyn Wyman <sythismom@yahoo.com>
Belding, MI - Saturday, October 25, 2003 7:10 PM CDT

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So glad to hear Lucas doesn't have the "superbug" but can fully understand how serious and frightening this is for you. My thoughts and prayers are for Lucas today.

Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Saturday, October 25, 2003 12:17 AM CDT

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I consider what I read the start of good news. Thank God it wasn't the 'superbug'. Now we will continue to pray that the infection clears and we won't have to worry about the worse case scenarios like menangitis. Thinking of you all through the day.
Jane Trimper
Duke, - Saturday, October 25, 2003 7:21 AM CDT

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Thinking of you and hoping things get better soon. Your family is always in our thoughts and prayers. Keep fighting Lucas! We care and think of you often.
Joanne Rhode <jrhode@aol.com>
Duke, - Friday, October 24, 2003 7:06 PM CDT

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We are thinking of you all tonight..as always. Emily Nevins just shared a story about how Lucas made everyone laugh in First grade.. He wanted to know if Eskimos are called Inuits because they are "Idiots"; Emily laughs every time she re-tells the story. The thought of Lucas always brings a smile to many of us!
Kathy Lindenthal
Little Silver, NJ - Friday, October 24, 2003 6:31 PM CDT

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Hi-
I just spoke to your grandmother,Lucas, and if there is anything at all that you guys might need-let me know! I will try to call the hospital tonight, but just in case I am unable to reach your mom -tell her to let me know.
I can't wait until I see you...
Big Hugs and High FIves-
Donna ...aka "DODO" :)
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Friday, October 24, 2003 5:46 PM CDT

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I had the pleasure of meeting Lucas at RMH in Minneapolis while vising my nephew Max Trimper. Remember you have many, many people praying for Lucas and your family. Stay Strong.
Cindy
Cindy Blanchard (Jeff Trimper's sister)
Albany, NY - Friday, October 24, 2003 1:55 PM CDT

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Thinking of you today and all weekend as we "Walk for MLD". Hang in there all. Hope things are getting better.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
- Friday, October 24, 2003 11:28 AM CDT

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You guys are on my mind all the time. I am so sad to hear that Lucas sick. My prayers are with him and you. I don't know what else to say but I want you to know that I'll be thinking about you even more.

Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Friday, October 24, 2003 10:17 AM CDT

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We are thinking and praying for you. Wish we were closer to help out.
Deb www.caringbridge.com/mn/ajtoivola <dltoivola@yahoo.com>
gilbert, mn - Friday, October 24, 2003 9:07 AM CDT

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Lucas-
Oh my goodness your body has been busy!! I know you are superman but "super bugs" too!! Well, you keep your chin up and rest a lot too! We are sending gigantic healthy hugs your way and lots of positive thoughts to help you defeat these "super bugs"!!
You should have seen Buddy Mitchell tonight...he was in the shower with the hand held nozzle and just as I walked into the bathroom he soaked me!!UGH!! Everything was wet -even the toliet paper-YUCK!! He started laughing so hard as I stood their soaked from head to toe! I think you would have cracked up laughing -had you seen it for I know you and Mitchell are quite the pranksters!!:) I had to dry the ceiling, walls, everything and then tip toe outside (BURRRR) to hang the towels & rugs. I bet tommorrow morning there will be icicles on them!!
I am thinking of you and can't wait until I hear you are all better and on your way home!!
Hugs, high fives, & all that stuff-
Donna
Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Thursday, October 23, 2003 9:04 PM CDT

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Hang in there. We are all thinking of you and pulling for you.
Mary Kiener, caringbridge.org/ia/sam
- Thursday, October 23, 2003 8:31 PM CDT

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I never write in, but I check daily- some times twice. Please know that I pray nightly for Lucas, especially with the E Coli. I believe strongly in prayer and will ask for healing. We've requested prayers for Lucas on our website but I didn't want to list your site unless you give me the OK. Always in our thoughts,

Jane Trimper
Duke, - Thursday, October 23, 2003 8:20 PM CDT

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Hey All,
Lucas, Hang in there honey. We are thinking about and hoping you feel better real soon.

My heart breaks when there is a set-back. I am saying a prayer that this antibiotic does it's job quickly so that Lucas can get some relief. Nathan went through a scare like this but was able to get through and was fine. Just needed the right antibiotic to do it's job. Thinking of you. Hang in there. Lots of love,
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
- Thursday, October 23, 2003 12:44 AM CDT

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Hey Lucas,

Hang in there sweetie! We're thinking of you every minute and wish you a speedy recovery from this infection.

Auntie Zelma and Uncle Bernard send you love and kisses from England.

We love you very much.

Smooches,
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ USA - Thursday, October 23, 2003 7:05 AM CDT

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Hi Lucas

Sorry you have this infection.

I am sure with your smile and determination you will be rid of this very soon.

Love to your sister Abby as well, you are both inspirational.

Keep fighting.

Auntie Mel and uncle Ian

London UK


MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, united kingdom - Thursday, October 23, 2003 1:51 AM CDT

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Lucas and family, Sending lots of love, good thoughts and prayers your way for a speedy recovery of this infection.
Rhonda Frachiseur (Nathan- http://caringbridge.org/tx/nathan) <rhonda.frachiseur@ps.net>
Allen, TX - Wednesday, October 22, 2003 10:13 PM CDT

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Lucas and family,
I just wanted you to know that although I am at your bedside during the day, I don't forget about you when I go home. You are in my thoughts and prayers every night. Hang in there. You will all be okay...I promise.
Respectfully,
Your nurse, Megan
Megan <mcaffrey@humed.com>
- Wednesday, October 22, 2003 9:57 PM CDT

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Lucas-
Oh my goodness -have you been busy!! All these ambulance rides and "batting" those long, gorgeous eyelashes at all the medical staff!!
I have been thinking about you so much and can't wait until you come back so we can "hang out"!! I miss all of you-
give your mom & dad & sissy a big hug for me, okay?
Hugs, High fives & all that mushy stuff-FEEL BETTER!!
Donna

Donna Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ - Wednesday, October 22, 2003 7:05 PM CDT

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Sending up extra prayers for Lucas and all of you. We are thinking of you and hoping they can clear up the infection quickly. I so admire your strength and positive attitude in all situations that you have found yourself in since Lucas' diagnosis.

Sending lots of love and positive energy to the east,
Donna Volz <ldvolz@msn.com>
Earlham, IA - Wednesday, October 22, 2003 3:02 PM CDT

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Dear Lucas,
I'm so sorry that you don't feel well. I hope you get better soon.

Dear Abby,
I hope you don't get too stressed out. I hope Lucus gets out of the hospital soon.

Dear Mr. and Mrs. Viscomi,
I sure hope you're not too stressed out with all this going on. I know Lucas is getting the best care.
Your friend, Taylor
Taylor/ Mrs. Crompton's Student <ecrom489@aol.com>
Wescosville, PA usa - Wednesday, October 22, 2003 1:16 PM CDT

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Hi Breakfast Companion!

Uncle Eric and I are so sorry to hear that you are back in Hackensack. We do hope that you will get over this setback very quickly and show the fighting spirit you've shown all along.

It was great to see you recently and to get that lovely smile you always give. Be brave and keep smiling. You really are such a tremendous inspiration to everyone.

Lots of love as always.


Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, UK - Wednesday, October 22, 2003 12:23 AM CDT

---

Hi Lucas

Sorry you are uncomfortable at present and back in hospital I am sure your strength and smile will help you through.

We love you as always.

From the eastern end of the big pond.

Love Auntie Mel and Uncle Ian

London, England


MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Wednesday, October 22, 2003 2:34 AM CDT

---

I check your site numerous times daily, and while I don't always sign in, please know my thoughts and prayers are with you every step of the way! Love and Peace... Pat, Maddie and Mikaylah (Hope you got the cookies, can't remember if I sent them to your new address or not? Silly me!) www.caringbridge.com/page/maddigan
Pat Lang <getnyzer2@hotmail.com>
Chaska, MN - Tuesday, October 21, 2003 9:45 PM CDT

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Dear Lucas,
Sorry to hear that you've been having a rough few days. Knowing you, you'll come through it with a HUGE smile! We think about you every day and hope to see you very VERY soon.
We love you!
Uncle Stephen, Auntie Cory & Jonah <coryandstephen@aol.com>
- Tuesday, October 21, 2003 9:17 PM CDT

---

Lucas,

So sorry your your back at the hospital but hoping they get you better soon. I remember those beautiful eyelashes. Hang in there.
Rhonda Frachiseur <http://caringbridge.org/tx/nathan ; rhonda.frachiseur@netzero.net>
Allen, TX - Tuesday, October 21, 2003 9:50 AM CDT

---

Hi Lucas,
I heard you are in the hospital. I love you.
signed TJ.
Mrs. Crompton's class <ecrom489@aol.com>
Wescosville, PA usa - Tuesday, October 21, 2003 8:20 AM CDT

---

Hi Lucas

HOME OF SOCCER AND HARRY POTTER.

LONDON ENGLAND

Keep smiling and battling and we are delighted that the intensive therapy is helping.

As usual your wonderful parents along with Abbey's love are showing tireless focus to bring you the best care possible.

You are an inspirational team and we are with you all the way.

Keep up the good work and keep smiling Lucas as you bring a ray of sunshine to a cloudy London autumn morning.

Love to you all.

Mel and Ian Russell
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, united kingdom - Monday, October 20, 2003 2:07 AM CDT

---

Dear Lucas,
My mom and I are members of MRT. I am an 8th Grade student and my mom, a substitute teacher. We heard about your story from your dad and want you to know how brave we think you are. We would love to meet you someday. Be well!

Connie Sue & Randy Strauss <Csf555@aol.com>
Tinton Falls, NJ United States - Sunday, October 19, 2003 8:52 PM CDT

---

Lucas-
You look "marvelous darling"!! We miss you guys and hope to see you real soon!!
Hugs to each of you...
High fives & all that stuff-
Bobby, Donna & Buddy Mitchell
B,D, & M Anderson-Sweeney <mitchells_world@yahoo.com>
Eatontown, NJ USA - Sunday, October 19, 2003 7:56 PM CDT

---

The picture on the front is so good. I am glad to see Lucas has made the transition to get his much needed therapy. Lucas will be on my mind as my family goes to Amarillo to participate in the Walk for MLD...being put on by the Stennis Foundation. I hope you are well and the next month goes as planned.
Rhonda Frachiseur <http://caringbridge.org/tx/nathan>
Allen, TX - Saturday, October 18, 2003 7:55 PM CDT

---

Just checking in to say hi and see how you are all doing. Lucas is such a strong, courageous young man and it is obvious he gets that from his parents. Know that I think of you all often and pray that this next month brings some relief for Lucas.
Donna Volz www.caringbridge.org/ia/collin
Earlham, IA - Thursday, October 16, 2003 10:34 AM CDT

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Sam,David, Abby and Lucas

LONDON ENGLAND

10:45AM 16/10/2003

We have read the updates today and are moved by the number of wellwishers and schools now taking interest in Lucas's condition.

It is clear you are doing the very best for Lucas and your courage and tireless effort for your child shines through to us across the pond.

Glad progress is being made.

Love to you all.

Mel and Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, united kingdom - Thursday, October 16, 2003 4:47 AM CDT

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Hi Lucas and Family

My name is Bev Gruensfelder and I am a teacher/member of Monmouth Reform Temple. Your courage in dealing with this illness is commendable! My thoughts and prayers are with you and your family during this difficult time. Every student at MRT will hear your couragous story this Sunday (10/19/03)at a special assembly program. Expect lots of cards and letters the next few weeks from your temple family at MRT

Love,

Mrs. Gruensfelder
Beverly Gruensfelder <BGruensfelder@aol.com>
Tinton Falls, NJ United States - Wednesday, October 15, 2003 9:24 PM CDT

---

I hope the intensive treatment accomplishes all it is meant to. I don't think a day goes by that your not in my thoughts. Go Lucas.
Rhonda Frachiseur <http://caringbridge.org/tx/nathan>
Allen, TX - Wednesday, October 15, 2003 7:45 AM CDT

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Hi Lucas-
I hope the journey to Tom's River went well. I spoke to your Dad a couple of days ago but was unable to call for I mixed numbers up. I was driving when I spoke to him and realized ...I can't drive and remember #'s. I will continue to check in and think about you!! Have you thought about your logo??
Miss all of you-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Wednesday, October 15, 2003 7:39 AM CDT

---

We are thinking of you all often. Praying for Lucas. Wish we could do more for you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Gilbert, MN - Tuesday, October 14, 2003 11:38 PM CDT

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Hi Lucas,
We hope you are feeling better. Our class is learning about you on the website. We hope yuo are not having much pain and the doctor's and nurses are taking good care of you.
Nrs. Crompton's students,
Nicholas, Todd Jr., Jacob and Jeremy
Mrs. Crompton's class
Wescosville, PA USA - Tuesday, October 14, 2003 8:52 AM CDT

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Dear Sam, Dave, Luke and Abby,
My new class is slowly getting to understand more about Lucas and your family through the web page. We talk about his condition, but this class is younger and doesn't quite understand things the way my older students did last year. I pray for all of you and know that you will be able to make the best decisions on Luke's behalf.
Lots of love, Eileen
Eileen Crompton
Macungie, PA USA - Tuesday, October 14, 2003 7:11 AM CDT

---

Lucas

Glad the surgery is over we have read the update today and hope that you will be home very soon and more comfortable.

We know you are a true hero and your wonderful parents will make the best decisions for you.

Love to you all with think of you daily.

Love

Auntie Mel and Uncle Ian
Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, united kingdom - Monday, October 13, 2003 1:44 AM CDT

---

Hi guys-
All is well here and we hope the same for you guys!!
You have tough decisions...you'll make the right decision even if you question yourselves 3,000 times after. I think this is just part of being a parent and wanting to do "right" by your child!!!
Lucas- I was watching MTV and heard Shaq owns the Superman emblem and I thought about you!! Since he owns this, but you are the real superman, what shall we make your logo?? ...let me know!!
Hugs, high fives & all that stuff-
Bobby, Donna & Buddy Mitchell
B,D, & M Anderson-Sweeney
Eatontown, NJ - Sunday, October 12, 2003 3:30 PM CDT

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Hey all,

I come by daily and want you to know I am thinking about you. I hope Lucas is able to come home soon.
Rhonda Frachiseur <http://caringbridge.org/tx/nathan>
Allen, TX USA - Sunday, October 12, 2003 9:37 AM CDT

---

Hi Lucas-
My name is Lindsey and I met your Mom at Back to School last Tuesday. My son Billy is in class with you and I'm sure he's looking forward to you coming back to class! I'm so glad your surgery went well-we were all thinking of you.
It was wonderful to meet your Mom- how lucky you are to have her!
We wish you all the best and hurry back to school-I heard there will be horseback riding again soon!
Lindsey August
Old Bridge, NJ - Saturday, October 11, 2003 7:54 PM CDT

---

Hi Lucas-
Just checking in and to let you know we hope you get back to your "spunky" self soon!
Take care and I am sending big hugs to you. You'll have to let me know who snores louder mom or dad!!!!
-Donna

Donna Anderson-Sweeney
Eatontown, NJ - Friday, October 10, 2003 5:26 PM CDT

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Hi Lucas!

Glad you're surgery is over. We know you'll be happy when you can go home!

It's great that your Mom got to sleep close to you instead of with all the SNORERS! Hope you don't snore too loudly!

We miss you and love you very much.

Take care of yourself.
Auntie Cory, Uncle Stephen & Jonah
- Friday, October 10, 2003 12:12 AM CDT

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Hi Lucas

FROM THE HOME OF SOCCER AND HARRY POTTER

Glad the surgery is over. Keep smiling and enjoy the TV and your father's silly jokes.

You will be home very soon.

Love to you all.

Auntie Mel and Uncle Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, ENGLAND - Friday, October 10, 2003 11:04 AM CDT

---

Glad to hear the surgery is over with. Wishing you a speedy recovery and a break from all this. We will continue to watch the site and keep you in our prayers.
Robin Bonney and Family <rgbonney@suscom-maine.net>
Freeport, Me - Friday, October 10, 2003 4:22 AM CDT

---

Lucas-
We will have to come and check out this new chair when you get home. We have been thinking about you all day and will continue to send our prayers for your ability to maintain that "super hero strength" that amazes us and all those around you!!
We love you and can't wait for HIGH FIVES in person-
Thumbs up-
Bobby, Donna & Buddy Mitchell
B,D, & M Anderson-Sweeney
Eatontown, NJ - Thursday, October 9, 2003 8:48 PM CDT

---

Lucas

You are our true hero and our thoughts are with you at this time in hospital.

A Rolls Royce wheelchair for a true class hero seems very appropriate.

Must have been fun playing football with Jonah and Abby and I am glad you enjoyed your time at Auntie Cory and uncle Stephen's.

Take care and I hope your treatment goes well.

Love to you all.

Keep Smiling we think of you everyday.

Auntie mel and Uncle Ian
Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UK - Thursday, October 9, 2003 3:24 AM CDT

---

Dear Lucas,

Please forgive us for being lazy about writing to you!

It was so great to see you at our house this weekend. Your beautiful smile lit up our very dark apartment! We know Jonah enjoyed playing soccer with you and Abby! By the way, Jonah still walks around saying "ABBY! ABBY!" If Abby were here she'd be so annoyed!

We were blown away by your Rolls Royce Chair! Very fancy. We hope it is easier to push once it gets adjusted.

Hope you're doing ok in Hackensack. We're thinking of you all the time.

Come visit us again soon.

Love ya lots,
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ - Wednesday, October 8, 2003 10:38 PM CDT

---

I come by often and check on you all. Say HI to Lucas for me. Bowling season is beginning and I am once again coaching the High School Bowling team. Mine are the varsity girls. It's bittersweet without Nathan being there but I know if he were here, he would want to be bowling. So we carry on. Last year we started giving a spirit award in Nathan's honor and look forward to seeing who will win it this year. The award was created to memorialize Nathan and his passion for the game. I just want you to know I think of you often and have the greatest amount of respect for what your doing for Lucas as a family. I know you must hear it a lot, but from someone that has also lived some of it, you all are awesome. I hope everything goes well on the 8th and you find yourselves home in a hurry. Go Lucas.
Rhonda Frachiseur <http:\\www.caringbridge.org\tx\nathan>
- Saturday, October 4, 2003 11:58 PM CDT

---

Hey Lucas-
I have been thinking about you a lot lately and glad to hear school is going well. I am completely surprised that your sister does not like the cafeteria...must be the food!!
Well, we will have to hang out real soon. Buddy Mitchell will be "playing "hookie"" from school tommorrow because of an ear infection. I think he realized I would be home for the next two days, along with his Dad, and he did not want to miss out!!
Well keep smiling and I will touch base real soon.
Hugs & high fives-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Wednesday, October 1, 2003 10:21 PM CDT

---

Hi Lucas,

We all heard from you mom and dad today. It was a great letter and we appreciate hearing how you are doing. We continue to pray for you and your family. Say hello to Abby for us.
Dave Dravecky's Outreach of Hope <info@outreachofhope.org>
Colorado Springs, CO USA - Wednesday, October 1, 2003 3:42 PM CDT

---

I come by almost everyday and check on all of you. Know that I am thinking of you.

Rhonda Frachiseur <http://caringbridge.org/tx/nathan>
Allen, TX - Wednesday, October 1, 2003 11:46 AM CDT

---

Dear Lucas and Family,
I was directed to your sight by my dear friend Pat Lang (mom of Madigan- also with MLD). I wanted to write and tell you how touched I am by your story, your stamina and your families bravery. I wish you all blessings and will check out your sight often. Please hang in there!

Robin G. Bonney <rgbonney@suscom-maine.net>
Freeport, Me USA - Thursday, September 25, 2003 9:00 PM CDT

---

Just checking in...Lucas-can't wait to see you and find out how school is going!!
-Bobby, Donna, & Buddy Mitchell
B,D, & M Anderson-Sweeney
Eatontown, NJ - Wednesday, September 24, 2003 9:01 PM CDT

---

Hi all

LONDON UK 10:30AM 23/09/2003

Happy belated birthday Abby it sounds like you had a great time.

Glad the hurricane missed you and you are all Ok.

We of course were safe 3,500 miles away.

Lucas it sounds like you are a very popular boy at school and we are not surprised with that great smile and your amazing courage. We are humbled by you.

You may wish to know Lucas that your Man Utd played our Arsenal in Manchester last Sunday and guess what it ended as a 0-0 draw.

Ruud Van Nistelroy missed a penalty in injury time at the end of the match.

Grandpa Barry sent me great picture of you and your friends at the match at Giants stadium and it looked like you all had a great time.

I bet the ball we sent you is now something, signed by the team eh???

Anyway got to go.

Keep up the great work and of course keep smiling.

From the home of Soccer and Harry Potter.

Love to you all.

Mel and Ian
Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UNITED KINGDOM - Tuesday, September 23, 2003 4:45 AM CDT

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Hey guys-we made it through the hurricane and even better got to celebrate Abby's birthday:)!! I will be checking in soon and have some things to drop by..
Lucas- you looked fabulous Thursday!!
Hugs-
Donna,Bobby, & Buddy Mitchell
B,D,& M Anderson-Sweeney
Eatontown, NJ - Sunday, September 21, 2003 4:30 PM CDT

---

Just checking in on my favorite NJ family. Glad to hear things are going well. I can only image what it takes for you to get through each day but I think you are doing a great job...love, commitment and courage are found in your house in large quantities. I love you guys!


Michelle C. Golightly <golightlymoo@juno.com>
Booneville, IA - Tuesday, September 16, 2003 7:54 AM CDT

---

Dear Sam and David,
So sorry to be the bearer of very sad news.
My friend Karyn called this evening and just got back from Iowa. While she was visiting Brett passed away. They are all heartbroken. I didn't know if you heard as of yet, but I thought you would want to know since I know you were very close to Michelle and Brett during your stay at the hospital.
Perhaps you could give her a call.
Love, Susan
Susan Stillo Wilkins <swilkins@ptd.net>
Stroudsburg, PA USA - Friday, September 12, 2003 10:42 PM CDT

---

Hi Lucas-
I am glad you like your new school. I can't wait until we can go bowling again...that was so much fun!! Mommy keeps bugging me with the whistles and said that she was going to bug you with them soon too!!! I think we should both blow them at the same time and really scare her!! That would be so funny!
High fives, thumbs up,& all that stuff-
Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Friday, September 12, 2003 7:21 PM CDT

---

Hi breakfast companion!

So glad to hear that you are enjoying school. Uncle Eric and I feel sure you'll make great progress there. Grandma has told me all about your days at the school and how you look forward to going every morning. We'll be seeing you next week after such a long time and we're looking forward to hearing from Mom and Dad what you've been up to since the start of term.

We were sorry to hear about the upset with the tubes but thankfully prompt medical attention sorted our the problem. Be strong and keep smiling and best of all keep that sense of humour as high as a high five!

Lots of love to you all.


Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, UK - Friday, September 12, 2003 12:33 AM CDT

---

WOW guys-
I don't talk to you for a couple of days and all this goes on!! I am glad Lucas was not admitted and that you were able to get the situation worked out!! I will talk to you all real soon!!
Lucas-
I am so glad school is going well and I thought they were nice at that school!! Keep them on their toes like you do with us..."bust their chops" with your great sense of humor!!
Hugs-
Donna
Donna Anderson-Sweeney
Eatontown, - Tuesday, September 9, 2003 6:12 PM CDT

---

I have checked your web page often and continue to marvel at the acts of kindness and you dedication to caring for Lucas. You are fantastic parents. Take care.
Mary Kiener
- Thursday, September 4, 2003 7:52 PM CDT

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Lucas-
We hope you had a wonderful first day of school...we thought about you all day!! Can't wait to hear all about it and to hang out again. What fun it was to watch Austin Powers with you and your laughter alone is so contagious.
See ya soon-
Hugs, High fives, & all that stuff-
Bobby, Donna, & Mitchell
B,D, & M Anderson-Sweeney
Eatontown, NJ - Wednesday, September 3, 2003 6:53 PM CDT

---

Hi Lucas

HOME OF SOCCER AND HARRY POTTER (That rhymes)

LONDON ENGLAND 01/09/2003

Great news you went out eating at your favourite retaurant
over the weekend. The chef tossed a shrimp tail at you, what fun!!!!

We had a great weekend as we saw Auntie Cory ,uncle Stephen
and Jonah who have come to England across the great pond to see us.

Jonah was up to his usual tricks hiding behind Auntie Zelma's curtains and playing with the remote control car we bought for him.

On the soccer front Man Utd were beaten yesterday but Arsenal won and are top of the Premier League we have won 4 out of 4 and are clear by three points.

As promised Arsenal's win this week is dedicated to you Lucas.

Lovely to hear the news regarding your school and we wish you happy times there.

We will be in touch with you very soon and you are always in our hearts.

Lots of Love

Auntie Mel and Uncle Ian




MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Monday, September 1, 2003 4:47 AM CDT

---

Dear Viscomi clan,
I am so happy to visit the site and see the pictures of great celebration! You have much to be thankful for. God's plan for you is rich in meaning. And each morning that you wake up think of all that is beautiful and thank Him...for having another day with each other.

You are always in my prayers and thoughts.
Love from your cousin~ Sue

PS. David-I enjoyed the baseball saga stories! It made me laugh,too. I think you should stick with bocce---or better yet, do they have quates in NE Jersey? Now that would be a sport a Viscomi would excel at!!
Susan Wilkins <swilkins@ptd.net>
Stroudsburg, PA USA - Friday, August 29, 2003 10:36 PM CDT

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Lucas-
It was great spending time with you and doing puzzles!!
Thanks for sharing your very comfortable recliner with me and my stinky feet.
You are a great friend and I can't wait until next time!!
High fives, thunbs up, & all that stuff-
Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Friday, August 29, 2003 6:11 PM CDT

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Hi Lucas-
Just wanted to say "HIIIIII"
High fives, thumbs up & all that stuff-
Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Wednesday, August 27, 2003 11:46 PM CDT

---

Hi Lucas

Home of Soccer London England 10;05 AM

Read the recent updates so keep fighting our little hero from across the pond.

Just to let you know both Manchester United and Arsenal started with wins last Saturday on the opening day of the Premier league.

So we are all at the top as usual.

Today Manchester play Newcastle kick off 12;00 noon.

Remember this season all wins of both Arsenal and Manchester United are dedicated to you.

We are also praying and send our best to all your great friends at RMH you are all heros one and all.

Keep smiling and take care.

Love to you all.

Auntie mel and Uncle Ian



Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UNITED KINGDOM - Saturday, August 23, 2003 4:18 AM CDT

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SOOOOO-LUCAS-
I was so glad to hear from Dad today, that you went for a visit to Grandma & Grandpa's house!!! We can hang out on Monday maybe...I hope this means you are feeling better!!!
Hugs-
Donna
Donna Anderson-Sweeney
Eatontown, - Friday, August 22, 2003 6:54 PM CDT

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Okay Lucas-
So...are you feeling better? I am hoping that we can hang out on Friday if you are up to it?
Hugs-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Tuesday, August 19, 2003 8:19 PM CDT

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Great party! I love the cake - "Faith-Hope-Love-Friends" - that pretty much says it all! I check in on and think of you all often.
Donna Volz - http://caringbridge.org/ia/collin
Earlham, IA - Friday, August 15, 2003 8:14 AM CDT

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Hi Breakfast Companion!

What a great party you had on Sunday. We would love to have been there with you all but the "pond" is a rather big stretch of water! The cake was bigger than you. All the photographs looked great fun.

Your trip to see Manchester Utd play sounded wonderful. What a treat to see such a great side and to have their autographs. I don't suppose you missed Beckham...

I am sure you are looking forward to going to your new school. It will be quite an adventure meeting new friends and joining in with them all.

Uncle Eric and I are so looking forward to seeing you in September. Get ready for some big hugs! By then you will have been at the school for a couple of weeks so we will hear all about it from Mom. In any case I will be speaking to Grandma so will get from her first hand info.

As always we think of you and speak about you all the time.

Our love to you all and we are counting the days until we see you.


Auntie Penny and Uncle Eric
- Wednesday, August 13, 2003 12:43 AM CDT

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Hi Lucas - I was not able to attend your party on Sunday - however, Mr. Roskowinski told me it was great!!!! You are certainly surrounded with love every day - You have the most wonderful family and friends, and Lucas I think you are wonderful too!!!
Karen Moore
Little Silver, NJ USA - Tuesday, August 12, 2003 11:23 PM CDT

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Hi Lucas, It is ages since you heard from me,gggaunt, but I have been speaking with Grandma Pam on the telephone and heard about the move to your new house and the special party yesterday. For some time I was unable to access your site and I'm not sure why that was, so I am very happy to be able to send this message. I think that your new school sounds quite wonderful and I am sure that you will have many exciting things to do there. We think of you and Abigail and your mom and dad a lot. And we also think of the town of Little Silver and what a wonderful community it is. I will write again before I go to California with gggAz-we leave on the 3Sept and will be away one month. You are in our prayers -always. love jr and az
Joy-Ruth Mickelson <jrmickelson@shaw.ca>
Edmonton, AB Canada - Tuesday, August 12, 2003 2:18 PM CDT

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I admire your family. So strong and together. It is so great to see the picture of you all together. We think of you often.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Monday, August 11, 2003 11:27 PM CDT

---

Lucas-
What a great day Sunday!! You have soooo many friends, family, and neighbors who care about you and WOW were there ever alot of people who showed up to let you know!!
It was so much fun hanging out with you and turning our hands into Smurf hands with the cupcake frosting.
It was even better hanging out this morning and hearing about your alligator. You are such a champ and hard worker!! Can't wait until Friday for more fun.
Hugs, High fives,& thumbs up-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Monday, August 11, 2003 8:30 PM CDT

---

London UK

Home of soccer

17:25

London reaches 100 degrees all time record.

Arsenal 1 Man utd 1

Man utd win on penalties 4-3

Tim Howard saves the penalty from Robert Pires and wins the match for Man Utd.

We dedicate the win to Lucas.

Have a great Sunday.

Love to you all.

Mel and Ian


Mel and Ian Russell <ian.russell16@btopenworld.com>
London, UK - Sunday, August 10, 2003 11:29 AM CDT

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Just checking on my favorite New Jersey family. I check every fews day, though I rarely write, but you are in my thoughts a lot. Wishing you good days ahead.

Sam, tell your mother hello for me!

Michelle C. Golightly
Booneville, IA USA - Thursday, August 7, 2003 7:39 PM CDT

---

Home of Soccer
London England
06/08/2003

94 degrees today very hot!!!!

Hi Lucas

Your ball is now autographed!!!!!!!! wow well done.What a collectors item.

I understand the game was great and of course the English team beat the Italians. (sorry Dad but well done Mum)

I cannot wait to see the pics if there are any.

What a great moment it must have been for the players to come over to you and to autograph your ball.

I am glad your signed shirt brought you attention.

My team Arsenal are playing Man Utd on Sunday at the traditional curtain raiser to the new season here in the UK at the Millenium Stadium and this will be in front of 75,000 fans. This match is where the Cup holders Arsenal play the League champions Manchester United for the community shield.

The premier league kicks off next Saturday the 16th.

I will think of you when the teams take the field.

To Sam and Dave

I have sent a copy of your latest update to Lee Horton at the Sunday People to see what we can do re some follow up publicity.

Love to you all and all you care for.

Cheers

Ian

Auntie Mel sends her love.
MEL and IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Wednesday, August 6, 2003 4:57 AM CDT

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Lucas-
Okay...you lucked out I am not going to be able to bring my accordian tommorrow because I have a sore throat and sniffles!! However, I am going to rest up so we can really make some noise the next time I come!! I will miss starting my week seeing you but will see you very soon- sooo practice that horn blowing and tube pulling!!
Hugs-
Donna
Donna Anderson-Sweeney
Eatontown, - Sunday, August 3, 2003 9:39 PM CDT

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Hi Lucas, Dave, Sam, and Abby,

Sorry it has been a while since we have written. We are glad to read that Lucas has been able to go out to different places like the beach. How wonderful that must have been!!! We truly think about all of you everyday.

Love Aunt Robin and cousin Jeff.

Aunt Robin and cousin Jeff
Phillipsburg, NJ USA - Sunday, August 3, 2003 8:19 PM CDT

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I am so glad you have moved into your new house! Such a wonderful community you live in. I think about you all often and praying for the best.
Michelle C. Golightly <caringbridge.org/ia/bret>
Booneville, IA USA - Monday, July 28, 2003 10:31 PM CDT

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Just checking in on you all and glad to hear that the new house is working out well and that Lucas is able to be out in public more. We think of you all often.
Donna Volz www.caringbridge.org/ia/collin
Earlham, IA - Thursday, July 24, 2003 3:17 PM CDT

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Hi Breakfast Companion!

Loved the photograph of you playing the trumpet. Keep up the good work little one, and Uncle Eric and I look forward to hearing you play when we see you in September. Glad to know you have now had your second Botox treatment. We are keeping our fingers crossed that the treatment works well for you and are keeping in close contact with Grandma and Mom so we're pretty well up-to-date with your progress.

As always we think of you every day and send our love to you all.

Till the next time.

Lots of love and tons and tons of kisses.


Auntie Penny and Uncle Eric
London, UK - Wednesday, July 23, 2003 12:52 AM CDT

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Hi Lucas,
I just stumbled onto your website and read your story! You sound like a wonderful little boy! I wanted you to know that I will be thinking of you often and you will be in my prayers. You are very strong!! Keep it up!!
Love,
Hollie Fritts
Hollie Fritts <holliellen@comcast.net>
Camas, Wa USA - Wednesday, July 23, 2003 5:28 AM CDT

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Hi Lucas,

This is from all of your friends at Dave Dravecky's Outreach of Hope in Colorado. We like the picture of you and your dad and sister at the baseball game. We noticed the baseball hat your dad was wearing :o)
We want you to know we continue to pray for you and look forward to reading more about you.
God bless,
Dave, Jan, Nancee, Kim, Connie & Ruth
Dave Dravecky
Colorado Springs, CO USA - Tuesday, July 22, 2003 12:01 AM CDT

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Hi Lucas!!!
I really enjoyed all your pictures - The baseball game and your new home (Your very cool new room) - I love all the Austin Power movies too! Love to you and your family always!!!!!
Karen Moore <karenapril@comcast.net>
Little Silver, NJ Monmouth - Monday, July 21, 2003 7:39 AM CDT

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Hope your new house is starting to feel like home. I hope your family had a good week. Thinking of you often.
Joanne Rhode
Michigan, - Sunday, July 20, 2003 8:29 PM CDT

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Lucas-
What fun I had today with you! I am so glad you and your family helped me celebrate for having you spend time with me was the greatest gift I could ever receive!
I can't wait until next time!!
High fives, thumbs up, and "booty busts" (haha)-
Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Saturday, July 19, 2003 8:56 PM CDT

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Our prayers are always with you. Glad to hear the new home is helping out. You are all amazing and strong. We think of you often.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Sunday, July 13, 2003 10:43 PM CDT

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Dear Lucas & Family,
Im am Maddie's aunt from Ohio. I spent 2 weeks with Maddie, her Mom and sister Mikaylah at the Ronald McDonald House in Minnesota last summer. It is something that I will never forget. I met many wonderful children and their families. I will now add your family to my prayers.
Deb Linder <thelinders@cros.net>
Bellevue, OH - Sunday, July 13, 2003 4:20 PM CDT

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We hope all is going as well as it can be. Think of you and all the RMH gang often.
Mary Kiener
- Saturday, July 12, 2003 11:05 PM CDT

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We hope all is going as well as it can be. Think of you and all the RMH gang often.
Mary Kiener
- Saturday, July 12, 2003 11:04 PM CDT

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Lucas-
How much fun I had playing in shaving cream with you yesterday- what a mess we made on mom's table!! We must do that again soon. I thought about you all day and hope that the Botox will help you loosen up some more so we can really make some noise and wake up the neighborhood with the accordian...of course with the whistles adding the perfect final touch.HAHAHA!!!!!
I'll see you monday
Hugs, high fives & all that stuff-
Donna
Donna Anderson-Sweeney
- Saturday, July 12, 2003 8:51 PM CDT

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hi,lucas Im sorry i have not written in a while.You are in mine and my families thoughts every day.I know God has a watchful eye over you lucas and will always be with you.I pray for you and your family all the time.I wish you peace and freedom of pain.You have been a tremendous inspiration to me.Keep up the fight lucas.
Chris tierney&family <ctierney@knighttrading.com>
little silver , nj - Wednesday, July 9, 2003 9:24 PM CDT

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Dear Lucas:

My neighbor (Maddy) has MLD. She is very brave and strong, so I know that you must be the same! I hope you and your family enjoy your new home together. Know that people all over are praying for you all. Best Wishes and God Bless!
Kelly Wilkinson
Chaksa, MN USA - Monday, July 7, 2003 7:37 PM CDT

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I am thinking of you always.
Rhonda Frachiseur <http://caringbridge.org/tx/nathan>
Allen, TX USA - Saturday, July 5, 2003 6:40 PM CDT

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Hi Lucas my name is Todd i'm Rusel and Caryn's nephew. I'm sorry you are sick. I HOPE YOU FEEL BETTER.

TODD
TODD MIDLER <SHARIMIDLER@YAHOO.COM>
WESTPORT, CT USA - Saturday, July 5, 2003 6:18 PM CDT

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Hi Lucas

We have just read the updates on a grey but warm summer afternoon in good old London Town.

We feel moved by the courage and determination of our Little friend in New Jersey.

We being Brits know little of Sammy Sosa but it sounds a big thing and I bet it was great to meet your sporting hero.

We are also moved by the perseverence and hard work of the wonderful people of Little Silver. Each must have hearts of Gold not just silver.

To you all we say welcome to your new home and may it bring you smiles and happiness always.

So the toast is the Viscomis in their new home.

We will drink a pint of English Ale later on to bless this toast.

Love to you all.
From Ian

To Russell me old Forest school(Mucker)great Mural. Pepsi would be proud hope you remember what this means.

Love to you all.

Mel and Ian


Ian and Mel Russell <ian.russell16@btopenworld.com>
LONDON, UK - Saturday, July 5, 2003 10:14 AM CDT

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I check your page often - thinking of you.
Mary Kiener (Sam's mom)
- Friday, July 4, 2003 11:45 PM CDT

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Hi Lucas-
I went to Fort Monmouth on Wednesday night to see the fireworks. My dad got us right under them and we had to look straight up to see them! It was so loud that I jumped everytime they went off. Do you remember when we were two and spent the 4th at your house? I have a picture of us sitting on the floor, in the kitchen, hiding from the fireworks!!
I miss you and hope to see you real soon...
-Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Friday, July 4, 2003 11:34 AM CDT

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Wow Lucas...is Sammy Sosa just as cool in person? You are just as much of a champ Lucas for you are so strong! I am so proud of you for all your recent accomplishments with your therapies. You truly are an incredible young man!
What a great room you have-your Uncle Russell did an amazing job.
See you soon-Hugs, high fives, & thumbs up-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Friday, July 4, 2003 11:28 AM CDT

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So glad you are in your new house. What FUN that will be, lots of work too. I continue to keep your family in my thoughts and prayers. I hope you enjoy your new home.
Joanne Rhode (Max's Aunt)
- Thursday, July 3, 2003 6:46 PM CDT

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Lucas,welcome to your new home, and the coolest bedroom ever. Special thanks to Bob Inman, Jodie Wright and Brian Murphy, USN, of Navy Mobile Construction Battalion-14, Jacksonville, Florida for volunteering their own time to leave from long days of construction work at Navy Earle to spend many long, hot hours working at Viscomi's, enabling completion of the new house renovation work on time. We couldn't have done it without you, guys. Come on back and see us.

Kevin O'Malley <omalleykc@pwcdetphil.navy.mil>
Little Silver, NJ USA - Wednesday, July 2, 2003 1:51 PM CDT

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Lucas,
Yow!!! I didn't know Dobby was so gigantic!!!!! What an enormous house elf! I hope you are sleeping well in your new home, and that your mom, dad and Abby are happy, too. I can't wait to come and see you soon, and watch Austin Powers with you and laugh. "C'mere...give me a hug...I'm cool...I'm hip.!!!" (Abby will do the voice and hand motions). Until next time little man! Many kisses,
Auntie Caryn <carynm@aol.com>
New York, - Tuesday, July 1, 2003 11:11 AM CDT

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Hi Breakfast Companion!

I have just come back from holiday and immediately went into your website. What lovely pictures of you, and the fire truck looked great. I know you will be so happy in your new house. The pictures on your bedroom wall are just something else! They're terrific. I guess they were done by Uncle Russell!

Lots of luck in the new house, and Uncle Eric and I look forward to seeing you in September. I'll write again soon.

Love to you Mom, Dad and Abby.
Auntie Penny and Uncle Eric
- Monday, June 30, 2003 1:47 PM CDT

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HI Lucas

Great pics and glad the move went well.

Must have been great to travel in the Fire Engine.

The new place looks really great.

Take care and we hope the your new home brings you health and happiness always.

Keep smiling.

Love

Auntie Mel and Uncle Ian

PS Great Mural!!!!!!!!
Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UK - Monday, June 30, 2003 11:32 AM CDT

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Dear Lucas,

Hope you are enjoying the new house. We bet it was exciting to ride in the fire truck!

We are looking forward to seeing you guys very soon.

P.S. Enjoy the mural--it looks awesome!

Love,

Auntie Cory, Uncle Stephen & Jonah
- Sunday, June 29, 2003 10:21 PM CDT

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HEY LUCAS,YOU DON'T KNOW US BUT I FEEL LIKE I KNOW YOU. I READ YOUR STORY OFTEN. I EMAILED YOUR MOM BACK IN MARCH BECAUSE WE HAVE A GRANDDAUGHTER WITH AN UNDIAGNOSED PROBLEM AND I MUST TELL YOU SOMETHING - YOU ARE TRULY AN INSPIRATION!!!! BEANIE WILL BE THREE IN SEPTEMBER!!! SHE IS ADORABLE LIKE YOU. SHE IS A FIGHTER JUST LIKE YOU !!! SHE WORKS REAL HARD TO GET BETTER JUST LIKE YOU!!! YOU ARE AN INCREDIBLE LITTLE BOY. YOUR SMILE MAKES ME SMILE!!! STAY TOUGH BUDDY, YOU WILL ALWAYS BE IN MY THOUGHTS AND IN MY PRAYERS. I SO ADMIRE YOU AND YOUR FAMILY. GOD BLESS YOU . LOVE THE JEWUSIAK FAMILY
JOAN MARIE JEWUSIAK <HIGGO40@AOL.COM>
ENGLISHTOWN, NJ USA - Sunday, June 29, 2003 6:23 PM CDT

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Yeah Viscomis'!!!!
I am so excited for you all!!
Can't wait to visit.
-Donna
Donna Anderson-Sweeney
Eatontown, NJ - Sunday, June 29, 2003 4:18 PM CDT

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Lucas

Good luck with the move.

May this be the start of much happier and healthier times for the Viscomis.

Cannot wait to hear about the journey in the fire engine.

What fun!!

Auntie Mel and Uncle Ian

FROM THE HOME OF SOCCER AND HARRY POTTER
MEL and IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Wednesday, June 25, 2003 11:26 AM CDT

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Lucas-
Well I am still not in tip top shape so...I have to make sure I do not share. I have been awake since 3AM and "WOW" it's so quiet and also very cool. I think I will try to go to bed earlier, from now on, so I can get up and enjoy the cool day before it heats up. Well, it is going to be a really hot today so you stay COOL and I will check in with mom. I think of you all the time and can't wait to see you...
Hugs, high fives,thumbs up, & all that stuff-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Wednesday, June 25, 2003 5:27 AM CDT

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Hi Lucas,

You look so handsome in the photo!

Good luck with the move. We can't wait to see you guys in the new house.

Lots of love,
Auntie Cory, Uncle Stephen & Jonah
- Monday, June 23, 2003 10:33 PM CDT

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You guys are awesome. Thinking of you daily.

Rhonda Frachiseur <http://caringbridge.org/tx/nathan>
Allen, TX USA - Monday, June 23, 2003 5:17 PM CDT

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Hey Lucas-
I talked to mom and it looks like we are going to be able to hang out next week -as long as my throat is better!!
You will have to show me the difference between digi-man/pokeman and all that stuff-I am so confused!!
Can't wait to see you!!
Hugs,high fives, & thumbs up-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Sunday, June 22, 2003 1:31 PM CDT

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Hello My name is Jenna, and I was born with a rare bone disease. Lucas is a true hero and a true inpiration, he is in my prayers. Keep Smiling Lucas!
My webpage is: http://www.matmice.com/home/fighterandchampion
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Saturday, June 21, 2003 0:31 AM CDT

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Hi Lucas
You must be so excited that you get to go for a ride with you sister on a fire truck to go to your new house!!! I am so proud of you,i am glad to hear that the new house is comming along well, tell everyone i say hi Lucas, god bless
Connie
Nazareth, pa - Friday, June 20, 2003 1:22 PM CDT

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It is so exciting to hear the house is coming along so great. To be taken to your new home with firemen is so wonderful. You have a great community surrounding you. It warms the heart to know that communities come together when needed. God bless. We will continue to check in.
Deb and family <www.caringbridge.com/mn/ajtoivola>
Mpls, MN - Tuesday, June 17, 2003 5:17 PM CDT

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HI Lucas

THE HOME OF SOCCER. LONDON ENGLAND 7:45AM

Great news that the house is coming along nicely.

It sounds like you have an army of kind people fighting your corner.

Not long now and a trip in a fire engine to look forward to and a Harry Potter bedroom wow!!

Keep smiling and laughing.

Hope one day to get over your way again and see you.

Love always.

Auntie Mel and Uncle Ian
Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UK - Tuesday, June 17, 2003 1:48 AM CDT

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Hi Lucas-
It is 1 am and I just had to check in . I love your new pictures !!You are amazing on that motor bike! A real rebel!!
Hugs for now -high fives for later-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Thursday, June 12, 2003 11:54 PM CDT

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Lucas, you are looking so good. Such a fine young man. I think about you everyday and pray that you and your family have many good days.
Michelle C. Golightly, your #1 fan from Iowa <golightlymoo@juno.com>
Booneville, IA USA - Thursday, June 12, 2003 9:28 PM CDT

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Hi Lucas - You don't really know me - you were once on my son Patrick's soccer team, and that is how I know you, your Dad was the coach. I would like to share a story with you that touched my heart. I had a very tragic loss in February, my dear brother had passed. He lived far away in Minnesota. My dear friends in our incredible town of Little Silver were just so full of love and support. I received so many cards and flowers and even meals! Some even came to my brother's memorial service in New York. This included Pete Roskowinski. A few days prior, Pete said he and the guys from his softball team would like to send flowers. I told him I felt that you needed us more right now. The next thing I knew Pete and his team began making donations to you in my beloved brother's memory. That just meant the world to me, and I know my brother would be so honored. He had a son not too much younger than you. My love, prayers and thoughts are with you and your family everyday.
Karen Moore
Little Silver, NJ USA - Tuesday, June 10, 2003 11:00 AM CDT

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Hi Lucas!!! - I think of you and your family everyday. You are surrounded with so much love - anyone would know that just by seeing your beautiful smile!!!
Karen Moore <karenapril@comcast.net>
Little Silver, NJ Monmouth - Tuesday, June 10, 2003 10:36 AM CDT

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Hi Lucas

THE HOME OF SOCCER LONDON UK 10:00AM

Glad you new home is nearly ready.

What a great team of helpers you have.

I understand you had a visit yesterday from Auntie Zelma and Uncle Bernard from the UK I hope you had a good time.

Keep smiling and battling.

Lots of Love

Auntie Mel and Uncle Ian


MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Tuesday, June 10, 2003 4:01 AM CDT

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Hi Breakfast Companion!
I spoke to Mom the other day and she told me you had been on a visit to the hospital. You are such a brave boy and as I've said before, an inspiration to us all.

I'm sure you can't wait to get into the new house. It will be so much better for you as you'll be all on one level and see what is going on.Abby will no doubt use it to practice her dancing and be flitting in and out all day.

Uncle Eric and I will be coming over to see you in September and I can't wait to see your smile as I haven't seen it for such a long time.

Be brave and keep smiling. YOU ARE QUITE SIMPLY THE MOST POPULAR BOY ON THE BLOCK if your messages are anything to go by.

Lots of love to you, Mom, Dad and Abby, and as you say in America "high fives".
Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, UK - Monday, June 9, 2003 2:22 PM CDT

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Just checking in on everyone. It is so wonderful that there are so many wonderful people in our world still able to help out. I am so happy the house is coming along. You are in our daily thoughts and prayers. God bless.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Sunday, June 8, 2003 11:38 PM CDT

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Lucas-
Just checking in on you and wow has everybody been busy with getting your new palace ready for you!! Your new room sounds stunning and will be fit for a king like yourself. I heard you had quite a ride recently on your motorbike and had every one running. What a great scene this must have been and I also heard that you got quite a giggle out of it all! Keep smiling.
we send our love to you along with high fives & thumbs up-
Donna, Bobby & Buddy Mitchell
B,D,M Anderson-Sweeney
Eatontown, NJ - Sunday, June 8, 2003 9:43 PM CDT

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Lucas,

Uncle Russ is doing everything possible to avoid finishing your room! He actually has come down with a cold, so we need to stay in NY until he feels better...GERMS=BAD NEWS!! However, when we next see you, Uncle Russ will have something special for you from a VIP at Hogwarts. And I have a box of goodies for you too, from some very special friends at Disney. Everyone loves you so much, 'cause - You da man! Miss you and your mom and dad, and even Ms. Abby - even though she throws things at me.
KISSES and HUGS
Auntie Caryn, Uncle Russ and Oliver, the Mystery Cat <carynm@aol.com>
New York, New York - Thursday, June 5, 2003 10:21 AM CDT

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Hello Viscomi's!! I was just thinking of you all and wondering how things were going. We sure do miss you out here in MN and your smiling faces that always brighten our days. Everyone from 4a says hello and we think of you always. Take care and God bless.
Erin Theroux, RN 4A, FUMC <etherou1@fairview.org>
Minneapolis, MN USA - Tuesday, June 3, 2003 6:56 PM CDT

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Hi Lucas

Just to let you know that other people in England are thinking of you and watching how you are getting on. You probably dont know who we are but I used to work with your granddad and I had a great Thanksgiving with you a few years ago in Paramus. Anyway keep smiling like the last photo on the web. Best wishes

Michael and Wendy Williams
Wilmslow
England

Michael Williams <wendymichael57@hotmail.com>
Wilmslow, UK - Tuesday, June 3, 2003 9:40 AM CDT

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Hi Lucas

Good Update:-

Great news the house was sold and that you will now be on one floor.

Glad the procedures last week appeared to have made you more comfortable.

I hope Abby is better and she can make her recital she is a wonderful sister to you and I know you love her dearly.

Love to you all and keep smiling and keep up the great work, you are an inspiration and a true hero.

Love

Auntie Mel and Uncle Ian



MEL and IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Monday, June 2, 2003 9:34 AM CDT

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Thanks for the update. Glad to hear you sold your house. We continue to think about your family and hope for all the best. Stay tough and keep fighting.
Joanne Rhode
Michigan, - Sunday, June 1, 2003 4:58 PM CDT

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Hi Lucas-
Just wanted to say hi to you and that I've been thinking about you. Please tell Abby I hope she feels better real soon. Hugs to all of you !!
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Saturday, May 31, 2003 4:12 PM CDT

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My thoughts are with you as always...
Rhonda Frachiseur
- Wednesday, May 28, 2003 8:37 PM CDT

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Hi Lucas-
It has been so long since I have seen you! I think you are the best and hope that we can hang out sometime soon. Mommy says that if I keep practicing your name that she thinks you would smile. I will keep practicing!!
Well- I have to go to bed now ....
just wanted to say "HI"!!!
Thumbs up & high fives~
Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Tuesday, May 27, 2003 8:52 PM CDT

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Hey Lucas,

How are you? I bet you are anxious to move into your new house. I can't wait to see Uncle Russell's mural.

Well, Jonah bit me today really hard on the arm! I'm sure you must have heard my screaming all the way out in Little Silver. I have to watch him like a hawk now.

I hope we'll get to see you this weekend. Jonah was getting sick a lot, so this week I'm keeping him away from little kids who like to spread their cooties all over him.

Well, take it easy and give our love to everyone.

Lots of love,
Auntie Cory and Company <coryandstephen@aol.com>
Guttenberg, NJ USA - Tuesday, May 27, 2003 8:32 PM CDT

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Hi Breakfast Companion!

I was so glad to read that you are having more ups than downs these days and do hope that they continue. You are a real inspiration to everyone who reads the updates on your web site. When I read them they make me feel very humble. What you have been through, and continue to go through, is far more than most people could handle.

Am sure you must be excited about going into the new house and your new room will be terrific. The mural Uncle Russell is going to do for you will look lovely I'm sure. You'll have the best room in the house by the sounds of it.

Keep on smiling and being brave. I know you've been such a good boy because I spoke to Grandma yesterday and she told me all the news.We have long chats and it's mainly all about you, so you are most popular.

Do hope that the therapy sessons continue to go well - they are so important to your improvement. As long as they are interesting as that makes all the difference.

Will write again soon, but in the meantime send lots of love to you, Mom, Dad and Abby. You continue to always be in our thoughts.
Auntie Penny and Uncle Eric <peneric@btinternet.com>
London, England - Tuesday, May 27, 2003 12:43 AM CDT

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Happy Birthday Lucas!! We think of you a lot out here in Minneapolis. That's so cool that J.K. Rowling wrote to you - Did she send you a REAL owl or a stuffed one? :)
Take Care!

Julia (Child Life) <jcopela1@fairview.org>
Minneapolis, MN - Friday, May 23, 2003 10:05 AM CDT

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Lucas, You are precious as always. I love the new pictures. It is so good to know that you can laugh.

Sam, You know that I am with you heart and soul. I know the tenacity and guts it takes to be there like you are. I just wish I were still doing the same. It is so good to hear that any minute of any day may bring a triumph against MLD and some joy to you. It surely makes it all worth it. Just know that I am thinking of you. All of you. Your positive spirits are such an inspiration.
Rhonda <http://caringbridge.org/tx/nathan>
Allen, TX USA - Monday, May 19, 2003 11:12 PM CDT

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Way to go Lucas! Being "9" is already starting to look up. You keep talking and moving, it will keep your mom and dad on their toes. I hope the days continue to get better and better. Thinking of you!
Joanne Rhode
Michigan, - Monday, May 19, 2003 6:36 PM CDT

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I guess it didn't say it all. I came right back. I had such a down weekend, and now I have such a big smile on my face. Thanks.
Jane Trimper
- Monday, May 19, 2003 6:54 AM CDT

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Wow. That says it all. Wow.
Jane Trimper
Stanton, MI - Monday, May 19, 2003 6:54 AM CDT

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Lucas

Great news that you spoke the other day and we are optimistic re the current update for your progress.

Great Picture at your birthday and to see that infectious smile.

How great of your aunt to have JK Rowling write to you and send you her favourite owl.The writer of Harry Potter wow!!!!

Uncle Ian was well chuffed this weekend when having lost the championship to your team Manchester United ,Arsenal managed to retain the FA Cup by beating Southampton 1-0 in the prestigious cup final Saturday afternoon.

The whole street could hear uncle Ian when Arsenal scored their goal.

So now both our teams have won trophies this season.

Sounds like your team in Little Silver are doing well

4-2 is a great result.

Whilst writing we send love to you all and please keep smiling.

Love.

Auntie Mel and uncle Ian


Mel and Ian Russell <ian.russell16@btopenworld.com>
LONDON, UK - Monday, May 19, 2003 4:29 AM CDT

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I just thought it was time to let you know we are still thinking of you all. Abby, you are such a wonderful sister. We continue to pray for you all. You have a positive look on things and that is great. Lucas we all miss you in MN. God is Great.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Sunday, May 18, 2003 10:02 PM CDT

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Hi Lucas-
We've been thinking about you so much! Things got crazy around here on Saturday -Mitchell came down with a runny nose and a determined opinion. I am going to try and swing by this week! Bobby had to go to the military base this weekend and they ended up having a commander's call both days. But because of these special meetings he did not get home until after 6 yesterday and today which sabotage my intentions to see you!! I want to know if you have been practicing with the whistle I brought you that is the crazy lips? Mitchell has one and it is absolutely his favorite -I bet the two of you could really make some noise together with them!!
Until next time-high fives and two thumbs up to you-
Donna
Donna & Mitchell Anderson-Sweeney
Eatontown, NJ - Sunday, May 18, 2003 9:54 PM CDT

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Hi Lucas,

Happy Birthday. Sorry we didn't write to you on your birthday, but we hope you got our card in time and that you enjoyed your special day.

Great news about moving around! Keep up the good work.

Happy Mother's Day Sam! You're an inspiration. We love you and are thinking about you.

We love you all!
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ USA - Friday, May 16, 2003 12:40 AM CDT

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Happy Birthday Lucas! I hope "9" is a great year for you! I love the pictures. I also love the hair. You go Lucas . . . . I'll be cheering for you all the way! You need to keep surprising Mom and Dad with all these new movements.
Joanne Rhode
Michigan, - Thursday, May 15, 2003 6:45 PM CDT

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Great pictures guys! Glad to hear things are going ok. We think about you often. Maybe you can go to Bethanys Hope gala ball next year. We met a lot of great people fighting MLD. Keep fighting!
Jeff trimper <jtrimper@cms.maisd.com>
Stanton, MI USA - Thursday, May 15, 2003 4:57 PM CDT

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HAPY BIRTHDAY LUCAS!!! It is great to see you smile.

To all the wonderful people who have been supporting the Viscomi Family- the Litle Silver Fire Department is organizing work parties to help paint and rennovate Lucas's new house. If you have a few hours to help out, please contact Fire Chief Nick Hubbard at 732-741-1495 of email him at diamondsking@comcast.net


Doug Glassmacher
Little Silver, NJ - Thursday, May 15, 2003 12:54 AM CDT

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Well Lucas it looks as if you got the royal treatment on your birthday!! Is that one of your grandmothers famous birthday cakes? I know how much you love them-it wouldn't be a birthday without it!! It was so good to see you full of smiles on your birthday. I will stop by real soon for a visit but my throat is sore today-so maybe on the weekend when I feel better and am positive that it is only allergies!!
Keep your therapists on their toes and make sure if you think you need to start doing some "gymnastics" that you give your parents a heads up first!! (haha)
Lots of love to you -high fives, thumbs up,& hugs too~
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Thursday, May 15, 2003 7:42 AM CDT

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Dear Dave,
I check here frequently to see how Lucas is doing. It has been so uplifting lately to see the pictures of him smiling! I hope that Lucas enjoyed his birthday and that he continues to show improvement.
Keep on smiling Lucas!
Barbara Brachlow ( Poricy Park and Dave's Tax Client)
Barbara Brachlow
- Thursday, May 15, 2003 6:49 AM CDT

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Dear Viscomis - Just to let you know I keep checking on you all very often. You are all in my thoughts and prayers. Lucas, keep up those surprises for your parents - we love those kind of surprises for they keep us on our toes!
Donna - mom of Iowa Boy Collin
Earlham, IA - Wednesday, May 14, 2003 10:41 PM CDT

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Happy Belated Birthday to you from Mom and me! I have a GJ stomach tube too! I also have a pic line because I just am not that hungary. We have alot in common actually, because I'll be a teenager before we get all situated and unpacked in our new house. I can't wait until my birthday...WE send our love an prayers. You guys are awesome.
Pat and Maddie
Pat Lang <patricia.lang@fleet.gecapital.com>
Chaska, MN USA - Wednesday, May 14, 2003 3:14 PM CDT

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Dear Lucas:
Happy Belated Birthday! I am so happy you are getting to see your friends and enjoy baseball. And what a wonderful Mother's Day present that your mom saw you making that incredible effort to get out of bed on your own. But as your dad says, "Lucas, you are a Viscomi." Keep up the good work! You are inspiring and amazing! -- from another Viscomi
Ana Viscomi <AnaViscomi@aol.com>
Highlands, NJ - Wednesday, May 14, 2003 1:05 PM CDT

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HAPPY BIRTHDAY LUCAS!!!

We didn't get to see you at the baseball parade but from the picture it looks like it was a great time. We are soooo excited that you almost wiggled out of bed, keep up the good work. We hope to see you out and about on the town soon.

Take Care, you are in our prayers daily.

Chris, Sandy, Christopher, Makayla, Meghan and Daniel Tierney
The Tierneys
Little Silver, NJ USA - Wednesday, May 14, 2003 11:46 AM CDT

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Lucas

Happy Birthday from the home of soccer.

Great news that you tried to move out of bed and the improvements are encouraging.

Keep smiling and keep believing.

Love to all of you.

Mel and Ian Russell
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Wednesday, May 14, 2003 1:57 AM CDT

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I am reading your journal with goosebumps. Keep thinking improvement. Unfortunately there is so much in front of us that tells us negative things and can bring us down, but believe in what you can not see. Believe in a cure and believe in improvement. I will be thanking God tonight for Lucas's movement and laughter and praying for more and more of each.
Jane Trimper
Stanton, MI - Tuesday, May 13, 2003 6:18 PM CDT

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Hi Breakfast Companion!

HAPPY BIRTHDAY to you today. I have sent you a card but in case it arrives late wanted to wish you an extra happy day. You're such a brave boy and I can't tell you how much I admire your spirit and your courage. I was talking to Grandma today and she told me that you had moved when you were in bed and it was thrilling news. I do hope that you will be able to move a bit more each day and I will be keeping my fingers crossed that that will be the case.

I do hope you enjoy your birthday and have some nice lobster and shrimps to eat.

Lots of love to Mom, Dad and Abby and keep some love for yourself.


Auntie Penny and Uncle Eric
- Tuesday, May 13, 2003 12:19 AM CDT

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HAPPY BIRTHDAY LUCAS!!
I hope you have a beautiful day and we will be thinking about you the entire day!!
We love you-
Donna, Bobby, and Buddy Mitchell
B,D, & M Anderson-Sweeney
Eatontown, NJ - Tuesday, May 13, 2003 7:17 AM CDT

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Hey Lukey,

I can't wait to see you, but unfortunately I have been sick. I promise to visit as soon as I get the ok! I miss you, though seeing you smile in the new photos does a lot to brighten my day. We'll read more Harry when I come to see you next.
Kisses
Auntie Caryn <carynm@aol.com>
New York, - Monday, May 12, 2003 9:37 AM CDT

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Hi Lucas,
It was great seeing you and your dad at the baseball parade last Sunday. You lifted my spirits-it was great to see your smile! We are so glad to know that you're able to move a bit more and get out for rides. Thanks for bringing sunshine and warmth to Little Silver!

Love, Cathy Balto
Cathy Balto <cathybalto@aol.com>
Little Silver, NJ usa - Sunday, May 11, 2003 9:17 PM CDT

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Great new pictures! I love that smile Lucas. It just occured to me I have never seen Lucas with hair. When I met your family at RMH, Lucas had already lost his hair. I must say, "Your hair looks good!" It is coming in nicely. I am glad to see you enjoying the outdoors. Thinking of you often. Happy Mother's Day Samantha!
Joanne Rhode
Michigan, - Sunday, May 11, 2003 7:22 PM CDT

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Hello to Lucas and family,
We keep checking this site regularly as well as hearing about you through the folks at Good News Preschool. Our entire church continues to pray for you. You have a very special family and we also send prayers for their continued strength during their tiring days. Savannah sends all her best wishes to you for your improvement....maybe we will be able to visit one day. Stay strong and believe in miracles. love, Tom, Gretchen & Savannah Fitzpatrick
Gretchen Fitzpatrick <flowergarden@optonline.net>
Keyport, NJ US - Wednesday, May 7, 2003 8:25 PM CDT

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Hi Lucas-
I am feeling better now but i just sleep alot. I have been thinking about you and miss hanging out. I am so glad you were able to go to the parade and baseball throw. You are a great friend and you make me smile!!
High fives and Thumbs up-
Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Wednesday, May 7, 2003 7:57 PM CDT

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Hi Lucas

Great news that you were the king of the baseball parade.We are sure you will bring your team great luck for the season.

We are glad the treatments are working.

You have brought Manchester United here in the UK luck in the greatest comeback in the history of the Premier League because on Sunday with my team Arsenal losing to Leeds at home 2-3 and Man Utd winning on Saturday 4-1 over Charlton.

Man Utd are the champions of England.

As their greatest fan you may now wear your signed shirt with pride as they are true champions.

Although uncle Ian is sad Arsenal are no longer Champions he dedicates Man Utd's victory to the true courage of a very special hero.

With love to you all.

Mel and Ian Russell
MEL and IAN RUSSELL <ian.russell16@bt openworld.com>
LONDON, UK - Wednesday, May 7, 2003 6:46 AM CDT

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It sounds very busy in your house. We don't sign in often but check on you twice a day. We have our dozen caring bridge sites to keep up on. I am glad the botox did some good. I hope and pray for much more for Lucas. Keep it coming docs!
Jane Trimper
Stanton, MI - Monday, May 5, 2003 4:38 PM CDT

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Hi Breakfast Companion

Uncle Eric and I have been away for a few days to Devon so haven't been able to check into your web site. So pleased to read that the Botox is helping your stiff joints and am sure with the dedication of Mom and Dad, the stiffness will ease as time goes on. Just getting out to see the ocean is an achievement in itself.

Keep up your good spirits and laugh as often as you can. It all helps at this time. Thinking of you and wondering how you're getting on. I will be speaking to Grandma over the weekend so will get some first hand news.

Lots of Love to you Mom Dad and Abby, and tons and tons of kisses.




Auntie Penny and Uncle Eric
- Saturday, May 3, 2003 4:31 AM CDT

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Hello from Iowa! Just checking in to see how you are doing and tell you that I think of you all each day. Take care of one another.
Michelle C. Golightly
Booneville, IA USA - Friday, May 2, 2003 2:27 PM CDT

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Lucas

Glad the Botox and Beclofan are making things easier for you and you were able to get outside over the weekend.

I bet the sea was lovely for you.

Please keep smiling and we are sure this will help.

As Manchester United's greatest american fan you may wish to know that they currently sit at the top of the Premier League in England and are 5 points clear of my team Arsenal.

If they win this championship we will get them to dedicate this victory to your continuing courage.

Love to you all.

Mel and Ian
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com>
ian.russell2@virgin.net, UK - Wednesday, April 30, 2003 4:27 AM CDT

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We continue to keep Lucas and the rest of the family in our prayers. We think of you often and hope things will continue to improve for you. We miss you guys!
Karel, Jack & Clay Loraas
- Tuesday, April 29, 2003 8:52 PM CDT

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Hey Lucas,
I'm happy your able to come outside in the nice weather.I hope there are more nice days ahead for you and the weather stays warm and beautiful.Abby,good luck at the play on Friday.I heard you are on my dad and Mr.Burkes teeball team.Have a good week and have fun!
Your friend,
Ryan Lehrkinder
Ryan Lehrkinder <Lehrkinder@comcast.net>
Little Silver, NJ United States of America - Tuesday, April 29, 2003 3:43 PM CDT

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So glad to hear that Lucas is bending and not so stiff. I hope this is just the beginning of the progress we will be hearing about. These certainly are difficult times, but continue to have hope and faith. We must find a way of getting our boys back to 100%. Thinking of you!
Joanne (Max's Aunt)
- Monday, April 28, 2003 9:01 PM CDT

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Hi Lucas and family,

You all are an inspiration with the spirit to keep fighting this thing we call MLD. Lucas, you are a lucky boy to have such dedicated parents. I think of you often and was happy to see the update and some progress with the stiffness. How great that you were able to get out. Lots of love.
Rhonda and family <http://caringbridge.org/tx/nathan>
Allen, TX USA - Monday, April 28, 2003 8:36 PM CDT

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Hi Lucas-
Mitchell and I returned home yesterday but both feel yucky still! We are napping alot today but thought we would check in and say "hi". The weather is beautiful and we hope you enjoy it! We miss you and each day think of you often.
Hugs, thumbs up, and high fives until next time-
Donna & Mitchell
Donna & Mitchell Anderson-Sweeney
Eatontown, NJ - Monday, April 28, 2003 1:20 PM CDT

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Dear Lucas,
My sister Yen and I had a wonderful time with you and your family! I'm glad to finally meet you, Sam and Abby.

All of you are in my prayers. God bless you always.

Armi
Armi Dizon <armidizon@lycos.com>
Rockaway, NJ - Sunday, April 27, 2003 7:37 PM CDT

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You are all so very brave and hope that you continue to have faith and patient endurance. You are always in my thoughts and prayers.


Julie Riccio, School Social Worker
Little Silver, NJ USA - Saturday, April 26, 2003 9:21 PM CDT

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I have my fingers crossed that these Botox injections will help Lucas. Your family continues to be in my thoughts and prayers. Keep fighting and stay hopeful!
Joanne Rhode
Michigan, - Thursday, April 24, 2003 8:22 PM CDT

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I like what you said about not looking too far ahead. Day to day. Remember too that prayers continue for Lucas. We think of you all very often! Love,
Jane Trimper
Stanton, MI - Thursday, April 24, 2003 11:15 AM CDT

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Hi Lucas,

Hope you are feeling better from the Botox. You are really doing a great job being brave.

We miss you and hope to see you very soon.

Lots of love,
Auntie Cory, Uncle Stephen & Jonah <coryandstephen@aol.com>
Guttenberg, NJ USA - Wednesday, April 23, 2003 6:58 AM CDT

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We continue to pray for you all. We check in on you all with lots of prayers this Botox will help alot. God bless you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Wednesday, April 23, 2003 0:30 AM CDT

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Hi Lucas-
This is the first time I have had to check on you since arriving in Vegas!! Boy have you been so busy...I am so glad you were able to receive the Botox so soon. You truly are a brave young man and I am so proud of you!!
Mitchell misses you so much and when he is better and we are back in town-maybe he can swing by to say HI!!(He got really sick on thursday and missed my sisters wedding)
Stay strong and we love ya-
High fives, thumbs up, and a tight squeeze-
Donna
Donna Anderson-Sweeney
- Tuesday, April 22, 2003 4:23 PM CDT

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Just checking in and hoping Lucas is already experiencing some improvement. You continue to be in my thoughts and prayers. Keep fighting and stay hopeful! I hope you have a nice Easter Day!
Joanne Rhode
Michigan, - Sunday, April 20, 2003 7:43 PM CDT

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Dear Lucas,
I always knew you would be a celebrity one day - all the movie stars and brave, strong kids get a little botox.
We are all hoping that this procedure helps so you can come down to the Library baseball fields and watch some games. Our thoughts and prayers are with you.
The Lehrkinder's
Little Silver, NJ USA - Sunday, April 20, 2003 7:40 PM CDT

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Lucas

Good luck with the Botox treatment we hope that you feel better for this.

You are a true hero and were clearly very brave throughout.

Our love goes out to Mum and Dad and Abby with wishes of a Happy Easter and Passover to you all.

Lots of Love

Mel and Ian Russell
MEL AND IAN RUSSELL <ian.russell16@btopenworld.com >
LONDON, UK - Sunday, April 20, 2003 3:00 PM CDT

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Hi Breakfast Companion

I do hope you will find some relief from the Botox injections very soon. I am keeping my fingers crossed for you, and hope to hear some good news soon. Thinking of you constantly and am very impressed with your bravery. You are a very tough little boy.

Lots of love and tons and tons of kisses.
Auntie Penny and Uncle Eric
- Sunday, April 20, 2003 6:36 AM CDT

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Our prayers are with you especially in the next 48 hours. God bless you all.
Deb
Minneapolis, - Saturday, April 19, 2003 11:53 PM CDT

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So glad that Lucas is home - if only it would warm up a little !!!! Good luck on Sat. - you are in our thoughts and prayers every day!!!
The Vilardi Family
Little Silver, NJ - Friday, April 18, 2003 8:07 AM CDT

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You continue to be in my thoughts and prayers. I hope the days ahead are full of growth, progress and strength. Happy Easter to all!
Joanne Rhode
- Thursday, April 17, 2003 11:30 AM CDT

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Lucas-
Thought about you today and will be thinking about you tommorrow as you make your journeys to and from appointments. I hope good news is delivered about your wheelchair and you get a plan of action for the valium. It was so great seeing you and hopefully I will be able to pop over before my travels.
Hang tough, bigger high fives (which were so awesome on Saturday), and thumbs up-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Monday, April 14, 2003 9:25 PM CDT

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Lucas and family,

It's good to hear of some progress in movement. I think of you all often and Lucas, your in our prayers. Too bad you aren't in Texas, it's a balmy 80 degrees and sunny. Hopefully you'll get some nice weather soon. Thanks for all of the support and prayers.
Rhonda and family <http://caringbridge.org/tx/nathan>
Allen, TX USA - Monday, April 14, 2003 2:14 PM CDT

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Hello Viscomi's! Good to hear from you (we don't have your email). It sounds like things with Lucas are getting better. We're happy to hear good news. Max is still very tired from the flu. It was a beautiful day today, so we were outside most of the day. When are you going out for your 100 days? We are going April 21-23. It would be great to see you guys. David, a few more days and you are FREE (kind of). We hope things continue on the right path! Thinking of you guys always. Jeff
Jeff Trimper <jtrimper@cms.maisd.com>
Stanton, MI USA - Friday, April 11, 2003 6:32 PM CDT

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Hi Lucas-
I just got home and it is 10:00pm so I can't call to see how your evals with PT and OT went but boy was I thinking about you today. I hope you had a great day and I will come by real soon just to check in! Have you tried out that kiss whistle I left for you?? I bet Mom would love one of those kisses from you !!!!!!
You are simply "the best"!
Big Hugs, High fives and two thumbs up-
Donna

Donna Anderson-Sweeney
Eatontown, NJ - Thursday, April 10, 2003 9:37 PM CDT

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Hi Lucas,
Do you like to watch baseball? We do, and the season is finally here (even though there is snow on the ground!) We like the NY Mets, but most families in Little Silver root for the Yankees.

Thank you for sharing your web site with us. We will check it often to learn about your progress.

The Galano Familty <Kathleengalano@msn.com>
Little Silver, NJ - Thursday, April 10, 2003 8:56 AM CDT

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Hi Lucas! Hi Mom! Guess where we are tonight? At the RMH visiting Brooke & family! We have an early morning appt before I go off to work. Glad to hear the Baclofen is helping. Have you tried Vioxx w/the Baclofen? Maddie is on both. Loved the slide show! We send (((hugs))) and prayers! Hang in there, buddy! Love, Pat, Maddie, & Mikaylah
Patricia Lang <patricia.lang@fleet.gecapital.com>
Minneapolis, MN USA - Wednesday, April 9, 2003 11:28 PM CDT

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Sounds like the fundraiser was a great success. That is wonderful! I check in every couple of days to keep track of Lucas. You are always on my mind and with my prayers. I do believe we will still see some more improvements for Lucas. Keep the positive thoughts and keep fighting.
Joanne Rhode (Max's Aunt)
Michigan, - Wednesday, April 9, 2003 8:55 PM CDT

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Dear Lucas and family its been awhile but there is not a day that goes by that i dont think of all of you guys and say a prayer. from what i have been reading its seems like your doing ok.some up and downs, but thats ok. keep up the good work and what i always say one day at a time. i know that is easier said that done but thats all you can do . god bless love donna
donna lutz <luven292@aol.com>
new hyde park, ny - Wednesday, April 9, 2003 8:06 PM CDT

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Hi Lucas

London Calling

Great to hear the improvements and that the stiffness is better.

I am so glad you are laughing and what a brilliant idea of a farting machine.

We eccentric english would find a farting machine very very funny.

So glad the fundraiser went well and shows you have loads of people who care about you, and so they should.

Lots of love and keep laughing and smiling.

Hi fives!!!

Love

Mel and Ian Russell
Mel and Ian Russel <ian.russell2@virgin.net>
LONDON, UK - Wednesday, April 9, 2003 8:18 AM CDT

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Just checking in, as I do each day, to see how my favorite New Jersey family is doing. I miss seeing you guys but can see you so strongly in my mind, especially Lucas' smile. I'm praying for strength for you all. I can only image the difficulties you face each day but I think you are doing a great job. Lucas and Abbie are lucky to have you as parents. Take care!

Michelle C. Golightly
Booneville, IA USA - Tuesday, April 8, 2003 8:12 PM CDT

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Hi breakfast companion!

It was lovely to read a bit of positive news on Dad's latest report. It seems the Baclofen is doing you a bit of good. Uncle Eric and I talk and think of you constantly and any bit of good news is so welcoming. Continue to press the "fart" machine. It obviously makes you laugh which is no bad thing. Hopefully we will read more good news as the weeks progress. I hope so anyway.

I will write again soon, but in the meantime lots of hugs and kisses and we send our love to you all as always.

Auntie Penny and Uncle Eric
- Tuesday, April 8, 2003 12:44 AM CDT

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How cool was yesterday? How much fun did we have? I don't know about you, kid, but I can not WAIT to see what happens next in Harry Potter!!!! I thing our pal Crookshanks is going to play a big part in the story. Next time I come, we will pick up right where we left off.

Ollie woke up Uncle Russ and me with very loud MEOWS this morning. He jumped on the bed and sat on Uncle's head. He wanted to play! I told him all about you last night and every time I said your name, he purrrrrrred. Uncle Russ will have more silly pictures to show you next time he sees you.

Big kisses on your forehead (and your very rapidly growing hair! —curly I want it curly!!!),
Auntie Caryn <carynm@aol.com>
New York, - Monday, April 7, 2003 10:26 AM CDT

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Lucas-
It was so great to hear that contagious laugh along with seeing that twinkle in your eye! My whole weekend was brighter because of it and now I can't wait until I come back over and can learn more about Yu-gi-oh (did I spell it right?). You are such a strong young man and I am so proud of you! I missed all of you so much and treasured each moment!!!
Until next time...
High fives, thumbs up , and enormous squeezes-
Donna
Donna Anderson-Sweeney
Eatontown, NJ - Monday, April 7, 2003 7:54 AM CDT

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Hi Lucas

Hi fives to you!!!!!!!!

Uncle Ian has just returned from business in Germany and realised he forgot to let you know the soccer score.

England 2 Turkey 0

We go top of the group.

Rio Ferdinand who signed your shirt was playing for the England team.

It was great to see the picture of Uncle Russ and Abby with you and I am glad you are still all at home together.

As you may remember uncle Ian went to the same school as uncle Russell when he lived in England.

Love to you all.

Keep smiling.

All our love from the home of soccer.

Mel and Ian Russell

MEL AND IAN RUSSELL <ian.russell2@virgin.net>
LONDON, UK - Saturday, April 5, 2003 3:19 AM CST

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Hi Lucas,
Just a quick note to say hi. Stephen will be over on Sunday to hang out with you. I have to keep Jonah at home because he has a cold and I don't want his boogers anywhere near you!
I hope to visit you very soon.

Lots of love,

Auntie Cory <coryandstephen@aol.com>
Guttenberg, NJ USA - Friday, April 4, 2003 10:04 AM CST

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HI LUCAS, WE ARE ALL PRAYING FOR YOU TO KICK THIS THING IN THE BUTT!!!! YOU CAN DO IT!!!!! WE MISS SEEING YOU OVER MY BROTHERS HOUSE.
DAVID , GINA , and baby MIKAYLA DOLSAY <davdols@yahoo.com>
LEHIGHTON, PA USA - Thursday, April 3, 2003 4:11 PM CST

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Hi Lucas

London calling!!!

I am glad to hear about high fives.

The man who signed your football shirt is playing for England again tonight in the UK in the Euro Championships against Turkey the third best team in the world. It will be tough.

I will let you know the score.

When we score I know England will be high fiving all over the team and I will think of you.

I know Rio and the team will be too.

Also the sports staff at the People newspaper in the UK are thinking and praying for you Lucas and as you know they helped me obtain the soccer parcel for you.

My friend Lee who is deputy sports editor sends his best.

He can be found at l.horton@people.co.uk

Keep smiling and high fiving.

From the land where soccer was born.

Love to you all

Mel and Ian
MELANIE AND IAN RUSSELL <ian.russell16@btopenworld.com>
LONDON, UK - Wednesday, April 2, 2003 9:03 AM CST

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Hello guys. I miss seeing and talking with you. It's been an emotional few days! We are glad to be home, but feel the pain for all the families we've met, good and bad. You think you come home from Minn. and everything will be "normal", but "we" carry all the feelings for all the families we've come to know. We hope things are going well, love he pictures! Keep in touch. You guys are always on our mind! David, only a couple more weeks!! Jeff
Jeff <jtrimper@cms.maisd.com>
Stanton, mi usa - Tuesday, April 1, 2003 9:21 PM CST

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I've been thinking about you so much and am so excited to hear about your "high fives"- they are definitely my favorite thing!! Hang tough and I hope to see you soon!
High fives, thumbs up, and all that cool stuff-
Buddy Mitchell
Mitchell Anderson-Sweeney
Eatontown, NJ - Tuesday, April 1, 2003 8:35 PM CST

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Entries March 2003 and earlier

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