History

Wednesday, October 19, 2005 9:58 AM CDT

God decided to call our angel, Jaerah home this morning. Thank you to everyone who has sent their love and prayers during our battle. In lieu of gifts and flowers we would like for you to donate to finding the cure in Jaerah's honor. Please check for updates in the next 24 hours.

Love Wade Warriors!

DONATAIONS: www.alexslemonadestand (all ways to donate are on this site)

~in honor of Jaerah Nicole Wade

{for pediatric cancer research}

MEMORIAL SERVICES:

10/22/05 @ 11:00am
Victorious Believers Ministry
1800 Bankheady Hwy (Hwy 61)
Carrollton, GA

10/29/05 @ 10:00am
St. John Vianney
402 Inman Avenue
Colonia, NJ

Thursday, September 29, 2005 5:52 PM CDT

All of Jaerah swelling is gone. Actually the AMAZING PART is most of it was gone by Saturday, and she was back to normal size by Sunday after noon.

Today we had another round of radiation to the liver. This is the last treatment. Only a small amount can go to the liver because any larger will destroy it.

All is well with us & I hope the same with you.

Please dont forget to send BIRTHDAY CARDS! 10/6/05 is the big day!!!!!

8 YEAH

JAERAH WADE
801 HICKORY LEVEL RD
#3112
VILLA RICA, GA 30180

It would mean so much.

God Bless

Wade Warriors

Sunday, September 18, 2005 11:26 AM CDT

Okay it's been a week, since I last updated you and so much has gone on so let's do a quick recap.

Monday 9/12 - We had a bone scan & Radiaiton

Tuesday 9/13 - We had to get blood, and an injection for
her bone scan in addition to radiation. That
night Jaerah stomach swell up.

Wednesday 9/14 - Radiation & MIBG, we went into clinic so the Doc could take a look. He reviewed the results of her CT Scan and said her liver had expanded (it should end at your navel, Jaerah covers the entire front of her stomach).
In addition there is also progression in her head, left ribs, left abdomen, right leg, and pevis.

Thursday 9/15 - We went to Radiation so the could take a look at Jaerah's stomach. They gave her a 1 time radiation to her liver to try and prvoide some relief as well as her neck.

*We were told that Jaerah was no longer eligible to start the study we were waiting for for. What a huge disappointment! However we know everything happans for a reson so.

New Plan still get the Zometa IV infusion for 15 mins every 28 days, and take oral VP-16 for 3 weeks and 1 week off.
We started VP 16 tonight

Friday 9/16 - We went for radiation and started the new chemo menitioned above

Saturday 9/17 - We were admitted to the hospital for a fever of 103 & fast breathing. Her liver is so large it is pushing on her stomach causing her loss of appetite, also pushing up on her lungs causing her to take shorter and more frequent breaths.

Suday 9/18 - We should be going home tomorrow, that if her doc says it okay. We have manage to get her pain under control. She is doing very well and feel good too. Her liver function is not a concern at this moment, only the size. Next week radiation will determine if the need to give her another round to her liver.

We are trying to resolve all issuse's so Miss Jaerah can return to school, and have her roller skating birthday party on 10/8/05.

Please send birthday cards, her birthday is 10/6/05. to

Jaerah Wade
801 Hickory Level Rd
#3112
Villa Rica, GA 30180

Thanks for your continued love and support.

Wade Warriors

September 21,2005

We were discharged from the hospiatl on Monday 9/19/05. Since than Jaerah has expirenced a lot of swelling (nothing a water pill cant take of). All in all she is doing very well.

I neglected to mention, what the doc had to me when we were reveiwing Jaerah's CT scan of her brain. He pointed out just how invaded Jaerah's skull is with disease, however her position of her brain is still intack. Normally her brain would have been pushed to 1 side of the skull, and cause a lot of damage.

There are miracles in everything, we just have to open our eyes to see them.

Have a Blessed week, I will update again next week.

Love Ya

Wade Warriors

September 24, 2005

The Dr's told me they are pretty much out of tricks. They are going to do 1 more round of chemo to Jaerah's liver & pray that the new chemo kicks in by next week. The tumor in her liver, is blocking some major blood vessels, and causing swelling. The water pill is not relieving the fluid fast enough (on Jaerah).

So here is what I need you to do, forget what you read. All of you true believers I need you to declare that the word of God is the final authority, and pray to God to give the doctor the answer, or the next trick. Nothing I wrote is more important then this one statement.

Believe with me that it is not over, and a miracle is still waiting in the wings.

God is good and a healer to those who believes.

Love You Wade Warriors

Sunday, September 11, 2005 10:11 PM CDT

The 1st 2 day of radiation went very well. On Friday Jaerah had a skellatal survey (25 x-rays of her entire body), a CT scan, and bone marrows

Monday she is having a bone scan, and on Wed. a MIBG study. Once again we will continue radiation for 2 weeks.

We can already see, that the lump on her neck is no longer growing/spreading. It will be about a week before it gets smaller.

I still trying to figure out the best way to add a link on this web site for the support of new chemo drugs for children.

Thats for your patience, and if you have any ideas, please feel free to email me.

Love & Kisses to all you!

Wade Warriors

Thursday, September 8, 2005 6:11 AM CDT

Good Morning,

Well let me give you an update. (I know it's about time) Jaerah has been enjoying school almost everyday.

Today we are going to start radiation treatments, she has tumor which are grown tremendously on the left side of her neck. It its starting to mess with the nerves in her arm, so she agreed to do radiation. This treatment will start today and go for the next 14 business days. On her CT yesterday we saw that this tumor extends over to the right side of her neck and down the spine. We are trying to get this monster before it starts messing with her airways, or other major blood vessels.

Okay now thats 1.

Next, we are testing Friday 9/9, Tues 9/13, & Wed 9/14, so we can start this new chemo on Friday 9/17. Oh, so much going on, but dont worry MISS JAERAH is keeping us on our toes.

She actually remembers more than we do. Thank GOD for that.

Okay I have to rap this up, Jaerah is ready to go to school this morning, before radiation. So I have to run.

God Love You! & Us too!

Have a Great Day.

Love Wade Warriors

*check back by the begining of next week, I need to post a letter in hopes of getting support for new chemo drugs for children*

If you need more info, there was an article in the USA today on 7/20/05 about it, or email me and I will get you a copy and go into more depth.

wade145@hyperband.com

Friday, August 26, 2005 6:22 AM CDT

Hello Everyone,

Just wanted to touch base with you. Jaerah is doing well, we have our up hill days, but you know Jaerah TOUGH TIME WONT LAST FOR LONG. She is using her wheelchair on occassions, but mostly she is pushing her friends around in it. We start our new chemo on 8/30/05. Zometa is the 1st on & it is given for 15 min every 28 days. (this stops the bones from producing cancer) & the 2nd chemo is cyclophosphamide which will be taken oral for 28 days.

We may do radiation, because she has some lymph nodes on the side of her neck that has grown too big, but they are not bothersome.

We shall see.

Have A Blessed Day

Love Wade Warriors.

Tuesday, August 9, 2005 12:28 AM CDT

We had another round of chemo yesterday, and Jaerah is just waking up now. Tues @ 1:30pm. She feels good and still has an appetite, she just finished 2 slices of pizza.

*She attends school regularly*

GOD IS SO GOOD!

News:
From our last chemo 2 weeks ago until now she has developed 4 new lumps on her head, and more masses on her neck as well.

What does this mean?

Well, it tells me & the dr's the chemo is not working.

So what will work?

Her doc is looking into a different approach with a drug that will work with her dna in addtion to chemo.

When?

We arent able to start any new treatments until her counts recover from this round. So in 2 weeks we should have a direction to go in.

Thanks for your love, care, & concern.

We love you too!

The Wade Warriors

Wednesday, July 27, 2005 7:51 AM CDT

Current update:

We started a new chemo (Irronotecan) again, this chemo is given 1 day every other week. In addition to this she has to take a oral pill(temador) for 7 days on and 7 days off. This is the 3rd chemo in 4 weeks because of new lumps that keep developing.

Jaerah has been pretty much out of it for the last couple of days, because this chemo is usually given over 10 days, however Miss Jaerah pithced a fit about missing school on Monday Aug 1. They decided to change the way they administer it.

All is well, Jaerah is still living life, and enjoying her summer.

I didnt forget about the pictures, I have Miss Cheryl working on that for me.

Thanks for your patience and understanding.

Love You Always

Wade Warriors

Friday, July 8, 2005 9:43 AM CDT

We just started a new round of chemo on Wed 7/6/05 called oxaliplatin. So before you start a new med, you are given this list of the things that are likely to happen, less likely to happen, and rare but in some cases serious.

Well, weve expirenced the numbness & tingling sendation of the mouth, throat, arms, legs, fingers, and toes which become worse with cold temperatures. nausea & vomiting, stomach cramps, difficulty sleeping.

However, the good news is NOTHING EFFECTS JAERAH APPETITE!

Thank you JESUS!

So this is day 2 after chemo, and things are pretty quite this morning.

My next entry probably will not be until 7/26/05. This is when we go for round 2 of this chemo.

OUR LOVE TO ALL OF YOU & YOUR FAMILY.

Wade Warriors

Friday, June 24, 2005 8:04 AM CDT

Jaerah has been out of the hospital since last Friday, I know I'm a tad bit late. However she is enjoying her time a Camp Sunshine, which is a camp(resort) for cancer patients. The called me on Monday to let me know, that her 1st time away from home is going well.

She is having a ball.

I will pick her up on Satuday 6/25/05 and post all pictures, and expirences of The Lighthouse & Camp Sunshine.

We are suppose to start a different type of chemo. I'm not sure what right now, but that info will follow.

Love you All

Wade Warriors

Wednesday, June 15, 2005 3:55 PM CDT

We started another round of chemo; however Jaerah has had better days. She continues to spike fevers, but the doctor dont know why. Today we notice more lumps on her head. (I notice one on Monday), and the Dr. suspects this is the cancer spreading. We are being admitted as I am writing this, so they can conduct a CT of her head, and an upper GI to see if they can determine why she is throwing up so much blood.

Well I guess thats enough detail. That's all for now.

We love you all, and continue to believe in God and in him all things are possible.

Wade Warriors

Saturday, June 11, 2005 8:54 AM CDT

We had the pleasure to expirence the Lighthouse Retreat in Seaside, FL. However, due to a high fever we had to rush back to Atlanta 2 days early because a possible diagnosis of pneumona. The ATL confirmed that it isnt pneumona, and more than likely the fevers are due to something viral. So we had 2 does of antibotics to to make sure Jae-rah is covered.

Now for the fun part of the week.

We met some awesome family's, and I am going to tell you about 1 in particular. I read about them shortly after coming to GA, and their son had Neuroblastoma. Did you catch that key word I said HAD. They had gone from GA to CA to have surgery and the Dr. decided to due another scan before the surgery he said the tumor was gone. This was just last year! Everyone just hold one and stay in pray, not only for us but also yourselfs, because GOD is listening and still performing mircles.

Another MOM said in the Bible it talks about GOD showing his Glory, but before he could you had to be held in the clef of his hand until he passed by. (OBVIOUSLY THIS ISNT A DIRECT QUOTE) Can you imagine how dark it must have been in the clef of GOD's hand? So what the Mom said was even though things seem like they are dark, just think GOD is providing a covering of proctection.

Just think about that.

We love & are always thinking about you.

Check back soon, I will update with new pictures.

Wade Warriors

Wednesday, May 18, 2005 5:58 AM CDT

We are having a Great week, this our 3 round of chemo. Things are going extremely well.

Thanks for your prayers. They are working.

Love Wade Warriors

Thursday, May 5, 2005 8:22 AM CDT

Hello Everyone,

Just wanted to let you know that the 2nd round of chemo went well, and Jaerah went to school yesterday for a half day. She came home and stayed up to 1 am this morning just to complete school/homework she missed.

On a personal note:

I know alot of you read this website often and you always provide encouragment to our family, but I am here to say to all of you hold and remain faithful, because GOD is about to work. Not only in our lives but yours as well. Sometimes we have to go thru things just to get to where GOD needs us to be so that he can BLESS US! And when this blessing comes your TOMMORROW will be better than you YESTERDAY.

So remain FAITHFUL, and keep your hands clean and your heart pure. BECAUSE YOUR BREAKTHRU IS COMING!!!

WE LOVE ALL OF YOU AND CARE ABOUT YOU & YOUR SITUATION.

THANK YOU FOR YOUR CONTINUED LOVE & SUPPORT

KEEP PRAYING FOR US & YOURSELF

AND WE WILL CONTINUE TO PRAY FOR YOU AS WELL

Have a great day

Wade Warriors

Tuesday, April 26, 2005 8:14 AM CDT

Hello Family,

Today is our second day of chemo. Day 1 went really well as toleration, now Jaerah's cooperation was something totally different.

We Started early this morning, and hopefully we will be done so that Jaerah, can go to school for a half day. YEAH!!
(I get some me time) Oh stop, I sure you all can relate.

Other than that all is well. Keep the prayer line open.

Thanks & I will post again later this week.

Have a Blessed Day!

Wade Warriors

April 10-13, 2005 9:50 PM CDT

-----------Sunday, April 10, 2005

WOW, its been a couple of weeks since I've update so here goes.

3/28/05 - Jaerah asked to go to the ER because I couldnt control her pain at home anymore. Once she was stablized, she decided it would be better to stay in the hospital so she wouldnt be in pain. By 3/31/05 Jaerah's pain still wasnt under control, so the doctor needed to give meds another way besides (IV morphine). Options: Oral meds (Jaerah said no), NG tube (tube thru nose to her stomach-Jaerah said no), & a feeding tube (tube directly in her stomach-Jaerah said no). It was obvious Jaerah wasnt going to agree to anything, so we made the decision to due chemo.

On 3/31/05 Jaerah went into mini surgery for a central line placement (IV that goes directly to the heart) & bone marrows (determines how much cancer in on the bone and in the blood of the bone). Chemo lasted 3/31/05 - 4/4/05. Chemo worked Jaerah isnt having anymore pain, however now we are back in the hospital for a fever of 104.3, and no white blood cells (she cant fight off infection). So we will be here at least until Friday. They also think Jaerah has a stomach ulcer and this could be the reason why she has been vomitting and lost so much weight. Currently she is on 2 antibotics, ulcer medicine and neupogen (helps to make the white blood cells multiply faster).

The plan:)

To get out of here in time, to go to Phili for the MIBG therapy on 4/26/05 with a check in date of 4/22/05. Not much time, but if you know Jaerah like I do; She'll be fine. This week we are set up for a CT scan, MIBG scan, ECKO, and Bone Scan.

Other than that all is well, and as always GOD IS GOOD.

Here is our hospital information

Childrens Healthcare of Atlanta
1001 Johnson Ferry Raod NE
Atlanta, GA 30342
Rm# 315 404-785-4315

----------Tuesday April 12, 2005 8:05PM

Hey everybody, I have wonderful news!

WE JUST CAME HOME FROM THE HOSPITAL :)

See how awesome GOD is; He just continues to move and work. The Dr's cant take the credit for this one, we give GOD all of the GLORY & PRAISE.

We completed most of our test, left is the MIBG for tomorrow. I should have test results for you soon.

Take care - We love you!

Wade Warriors

------------Wednesday, April 13, 2005

As promised I have a couple of results.

Bone Marrow - reveal cancer is in the blood of the bone

CT - reveal progression in some areas including new spot on the liver

CT also revealed that the chemo is working we have other area which no longer have cancer.

LORD WE LOVE & WE THANK YOU FOR THIS BLESSING!

FAITH MAKES THE HEART GLAD, AND BRINGS MIRACULOUS RESULTS.

Do to the lasted developments Phili has been put on hold for at least a month. Starting Monday 4/25/05 we will continue with another round of chemo.

Thank you for caring enough to check on Jaerah, please come back often to see Jaerah's progress.

The Wades

Sunday, March 6, 2005 10:38 PM CST

WOW, what a week, but by the Grace of God we made it through.

Recap
Monday 2/28 - Jaerah went to school all day. By the time she came home, she was complaining of pain, and difficulty walking.

Tuesday 3/1 - We had to make a trip to the hospital becuase Jaerah wasnt walking, vomitting, fever, and just having an "up hill day" this phrase comes from a very close friend.

Wed 3/2 - Back to the hospital where the doc said they wanted to put a line in because Jaerah wasnt taken any pain meds by mouth, and it would be easier to give them IV. Maybe with the meds decreasing her pain she would be able to walk. So a sterile IV was put in her arm and the plan was to come back on Thursday for a pic line. This a like an IV but can be left in for a longer period of time.

Thurs 3/3 - The pic line was place and Jaerah still wasnt walking, and very uncomfortable. After 3 attempts to fix the line, the had us come back on Friday to go to Intervention Radiology where they could use a machine to guide the pic line into place. Its suppose to stop right before her heart. For some reason the social worker metioned hospice/pallitive care. Hospice is when they cant do anymore for you and pallitive is to keep you comfortable as well, but you arent terminal at this point. Once this was mentioned to me by several people the onco, social worker,and the nurse practioner, I was saying the devil is a liar. How dare they count my baby out. I never spoke against there thoughts, but it bother me so much. It was just one of those days.

Friday 3/4 - Another round at the hospital, intervention radiology fixed the line. They asked Jaerah if she wanted something to eat and she said yes a BAGEL W/CREAMCHEESE. So I got her a bagel and some orange juice, and she ate and drank. We had to go to the clinic because Jaerah's hemoglobin is low to get some blood. Which by the way we couldnt get because it takes 3 hours to infuse and it would go past the time clinic was open. The social worker once again came to me about this hospice care, and I said to her WE ARE NOT READY FOR THIS, and she looked at me. I said it isnt her time, and I know you think that I am delusional, but we are waiting for some kind of DIVINE INTERVENTION! She explained her job is to provide me with plans A B C D & E and I told her once you make all those plans you will never follow thru with plan A. Of course she thought I was trying to be difficult. So what else is new. Next I had a brief discussing with the dr. and he said Phili is concerned that I wont follow thru with the ABT, becuase I decided not the do the chemo, so they pretty much think I'm flaky. I told him the chemo wasnt in the plans just the radiation, and had they stuck to the original plan the I wouldnt have changed my mind. Now whose flaky. I said to him Phili is not the final authority; among other things, and if they wont give Jaerah the medicine, then I will got to someone who will. So we will see what their descion will be. Just because they are a huge childrens research hospital doesnt mean that I can be pushed into making Jaerah have a treatment which I'm not comfortable with. All involve asked how Jaerah was feeling, and I said she was great, however the were skeptical because she was still being carted around in her wagon. They went to see for themselves and were amazed the she was eating, drinking, WALKING, & PAIN FREE.

LOOK HOW GOOD GOD IS.

Thank you all for your continued support, love and prayers.

IN GOD WE TRUST FOR HE IS WILLING & ABLE

Wade Warriors.

Sunday, February 27, 2005 6:49 AM CST

Let see where did I leave off.

Last week was a hectic one. Monday night 2/21 Jaerah had a fever of 102.5 by Tuesday it had gone away, but now she was throwing up constantly. Her stomach some what settled, and we made through the night. Praise God. On Wed. 2/22 it dawned on me, I couldnt remember the last time Jaerah went to the bathroom, so I called the onco and we went to the clinic. We had about 7 hours of hydraition, and she still only went once. But let me tell you those fluids did wonders for her. Jaerah has a better appetite. Thank you Jesus!

The doc came in to see us, and informed me the MIBG is scheduled for April 17. However they want Jaerah to have a round of chemo {5 days of cytoxin/topotecan}, and they need to put a line in this week and give chemo starting next week. I reminded the doc, that I said no more chemo, and he told me this is the only way they will let Jaerah on the study. I told him they are obviously trying to back me in a corner, and taking away my parental right to say no more chemo. He said he went to bat for us, and I believe him, but the doc @ CHOP didnt want us to come in on death's door. I asked if the nurses explained to him, what we went thru just trying to get an IV in her with numming cream on her arm. {5 people trying to hold her down for this IV, she was kicking, screaming, threatening to kill people it was horrible} of course she didnt get away with that. He said the nurse's did, and I said how do think she is going to be when you are trying to give her chemo, that's she already expressed she doesnt want. Doc says he expect some resistance but not to the extent of which Jaerah is doing. So I said to him, no. He said he would call me on Friday to confirm. On Friday, he called and I once again said NO MORE CHEMO, well I guess Phili isnt going to do the MIBG.

What I learned from this journey is anything we are meant to do as far as Lady J's treatment, is the LORD will workout without any problems. So, our next plan is to take the Vitamin A-Accutane and leave it in GOD'S hands. He has brought us this far, and weve come a long way Baby.

Love You All!
Be Blessed & Stay Strong

Wade Warriors.

Wednesday, February 16, 2005 5:36 AM CST

Wow another week has gone by, and all the adventures it has brought. On Friday I had an exciting hour journey to the pharmacy to get a injectable form of the oral chemo, I couldnt help myself (I was lost for about 1/2 hour). Just love to do that. This chemo was absolutely horrible. I mixed it with lemonade on Sunday night. Jaerah and I both said cheers, she went 1st then me, and we had a mutual agreement that it tasted to bad. So last night Jaerah tried to take the oral chemo capsule. I give it to her, she made 2 attempts with our favorite strawberry jello, and the darn thing just wouldnt go down.

So Friday we are scheduled to go back to the doctor to see if he has anymore tricks up his sleeve, before we have to go back to the hard stuff (line placement and chemo thru IV). Jaerah has her days, but yesterday was a great one.
She enjoyed her 1st soccer practice of the year, it was amazing to see her out there kicking the ball, well missing it 3 x's and falling on her butt. But then she mastered staying on her feet, I'm not to sure how many times she kicked the ball. And at that moment nothing mattered, it was just her being a normal 7 year old, out on the field with a bunch of her peers having FUN.

Wade Warriors

Friday, February 18, 2005

As we eagerly await a visit from Grandma, Grandpa, and Dutchess, we wisk to the dentist for a much need cleaning for Lady J. We arrive back home and pick up Grandma before heading to see the onco Dr.

Todays consult, not much different than the one before. Get Jaerah to take the oral chemo. She cant go for MIBG therapy if she doesnt. The cancer will spread if she doesnt. Low grade fevers and bone pain are the results of the cancer, and its only going to progress. WOW look how great Jaerah looks, and how well she is able to get around with such a low does pain patch. My ? should we disrupt her SPIRIT, when today she is able to laugh, run, play soccer, joke, and smile. With therapy that I've been told may only prolong her life for 1, 3, or 6 months (the devil is a lair) with no guarantee that it will even have an effect. The doc said this monster is so unpredictable, where is can grow and stop whether she's on chemo or not. So we are suppose to attempt the oral chemo for the rest of the week, and if we have no luck than we will get a script of a medicine called Acutane. This is suppose to help with the microscopic cancerous cell, but do nothing for the widespread cancer. I said to the Dr. you have no way of knowing what will or what wont work, because every child is unique. So, I definately want to try this because this could just be the one to work for Jaerah.

Well I will followup with you later in the week to keep you posted on soccer practice, and everything else.

GOD BLESS

Wade Warriors.

Friday, February 4, 2005 1:53 AM CST

Hello Family,

This is a different kind of posting! It's about my feelings & GOD!!

During a nice long cry, I said to God "how could you give me a job and then take it away without a good reason"? Like many of you I was given the job of being a mother, and part of that responsibility is if it broke, hurt, bloody, to make it all better. I felt like I was fired from the job of a lifetime just because. Well I said, "obvious you are still not answering, I dont know what I've done" but I decided to move on and play a game on the internet. As I was playing I heard GOD speak to me and said, "do you remember in you distress you made me a promise with your mouth" (PSALM 66). I said yes, I vowed to give you the praise for your MIGHTY ACTS with Jaerah whether it is thru chemo, some other kind of therapy.

I am sharing this with you because GOD is about to do some great things in our life, and I need you to bear witness. Please keep checking the board, and watch our Lord in action. I have great peace in GOD'S COMFORT (2Corinthians 1:1-11).

Love Michelle *(we are the wade warriors, fighting everyday thru GODS test to still be found faithful in HIS WORD)*

Wade Warriors

Tuesday, February 8, 2005

Today is 2 day of oral chemo, and it did not go well. The doctor made the suggestion to put this capsule in icecream, and that didnt either. So we have a call into the doctor for additional advice.

Thurday, February 10, 2005

Jaerah, had slept for 15 hours straight last night. Needless to say it scared me so, I had to call the Dr. today and ask if there was a possibility she would slip into a comma. He said no, that Jaerah's body is just so run down. Well I tell you that long slumber worked, because Miss thang is so energectic, she doing everything besides her homework & taking her medicine. (Praise God) for the energy, well take the good with the bad. As we try to finish homework tonight without another battle, tomorrow adventure holds a run to the pharmacy that 1 hour away, just to get the chemo in a syrup form.

I was notified today that Michigan where we were on the list to do the MIBG treatment has delayed it until May (ugh). But, this is a good thing because this prompted me to call the insurance company, and guess what Michigan isnt covered. Can you imagine if we had waited until it was right before she was suppose to go, and the found out it wasnt covered. *All you have to do is sit back and watch GOD work.* So we are in contact with Phili & San Francisco to see where we can get Jaerah in 1st.

Wade Warriors

Monday, January 31, 2005 10:40 AM CST

Jaerah has been expirencing a lot of bone pain lately. We are not up to (2) pain patches and oral pain meds, however she still go up this morning and went to school. The school called and we I went to go get her she said, "I dont want to go home; If I leave then I will have more homework; Can you just go home and get the medicine." What a true warrior. God has given her so much strength & preserverance. WHOO!! I am having a hard time just keeping up.

Jaerah has a new hair do. I will display the picture tonight or tomorrow. Or as soon as I take it.

FUNNY- Jaerah overheard me say Glowy (the girl cat)is in heat, and she said mommy I dont understand she doesnt feel hot. I said no that not what I meant, Jaerah said well I confused. I just said oh never mind.

Michelle - Wade Warriors

Saturday, January 22, 2005 0:26 AM CST

I know I havent update this web site like I should. My deepest apology.

I have some new pictures.

Georgia is wonderful. Especially the weather.
We are all settled in our new home, with our new addition to the family Princess.

I wish this entry was filled with all good news. Let me cut to the chase.

New scans from 1/14 - 1/20/05 show an unbelieveable progression. I dont think any of you can handle the details so I wont.

However, we dont call ourselves the Wade Warriors for nothing. I am please to say that because of GOD we are still in school everyday, and feeling normal despite how the scans say she should feel. To me this is confirmation that GOD is still with us, and is continuing to pull us thru.
The devil is a liar.

We are on a 3 to 6 month waiting list for MIBG therapy @ Michigan and California. In the meantime we just LIVE LIFE!

Please dont feel sorry for us, just PRAY with us.

We love you all, and will try to keep you updated on a regular.

Wade Warriors

Friday, September 17, 2004 10:48 AM CDT

Hello ALL

We are about to complete our 4th round of chemo today. We are at the hospital, awaiting lab results. Things are going great. Jaerah loves school, and was upset that she had to do chemo instead of gym.

We will have test in within the next 2 weeks, I'm not sure which ones they will be.

We have been going thru this for 2 1/2 years, and I am proud to say Jaerah will be having her 7th birthday on Oct 6. YEAH

Thanks for keeping us in your thoughts and prayers.
We love you all, and truly appreciate your support.

Wade Warriors

Monday, August 30, 2004 3:28 PM CDT

We have completed 3 rounds of chemo, and things are going well. Test results show the cancer is stable, we are scheduled to repeat the test in another month of so. Jaerah is in her glory, and enjoying every bit of being a 6 year old. In summer camp she swims 4x's a week, and is able to enjoy 2 trips a week. Her lastest past time is to jump on the trampoline.

GOD IS GOOD!

On 9/1/04 Jaerah starts 2nd grade with a full head of hair.

Wade Warriors

Wednesday, July 21, 2004 12:32 AM CDT

We are about to complete our 2nd round of chemo. Things are going extremely well. We will be testing in the next couple of weeks.

The Wades

Tuesday, June 29, 2004 2:23 PM CDT

Our 1st cycle of chemo went really well. Jaerah still has her appetite, and her spirit. We are off chemo for the next 2 weeks, therefore there wont be any post until 7/12/04 unless something major happens.

I hope all of you have safe & Happy 4th of July.

Wade Worriers

Friday, June 18, 2004 9:22 AM CDT

Chemo is going really well, it's a little rough getting back in the routine of things. Jaerah is still eating and active. Tommorrow she plans to play soccer. We have another week of chemo to go, and then we are off chemo for 2 weeks.

I will continue to keep you posted.

LOVE YA ALWAYS

WADE WARRIORS

Friday, June 11, 2004 9:04 PM CDT

We let the hospital yesterday @ 8:30pm from the surgery. All went well. Once we were home Jaerah spiked 105 fever, and went ended up back in the emergency room until 6:00am this morning. The doctor said the fever is just a postopertive one, and all is okay. We start chemo on Monday.

Thank you for your continued support, prayers, & love.

Wade Warriors

Thursday, June 3, 2004 9:51 AM CDT

Jaerah went to the ER on 5/29/04, because of back pain. They performed a MRI, and we were released. We received the results on Tuesday 6/1/04.

There are tumors up and down her spine.

A CT & Bone Scan were performed on 6/2/04, and confirmed the same thing.

Course of action:

PET SCAN on 6/8/04
Surgery to put in line 6/10/04
Chemo starts 6/14/04 until ??????

Thank you for your continued prayers

Wade Warriors

Thursday, March 18, 2004 8:30 AM CST

WE HAVE WONDERFUL NEWS!!!!!!

Jaerah CT results are in, and it showed she has sinusitis (this is what caused a positive PET Scan). So I am pleased to announce that we have been giving a 3 month break.

As of today we are 8 months out from our last chemo, and if we can make it a year then we are in the clear.

You are witnessing a MIRACLE in the making.

GOD BLESS~

WADE WARRIORS - Dwayne & Michelle

Tuesday, March 16, 2004 11:19 AM CST

Jaerah just came from what we hope will be her last CT scan at least for 3 months. I will post these results in 2 days.

Wade Warriors
Michelle & Dwayne

Monday, March 8, 2004 9:17 AM CST

WE HAVE WONDERFUL NEWS!!!!!

After a reevaluation of the PET Scan, the questionable area of her neck was actually her mouth. It lit up because she was talking (now that's not suprising), for this test when there is movements the sugar collects in the are that is in motion and it lights up on the scan. As proper precaution the Dr. is going to do one more CT scan, and if it comes up negative, than we get to take a couple of months off from scans.

We arent out of the water, but we are really close to the shore.

THANK YOU FOR YOUR CONTINUED SUPPORT & PRAYERS.

We are greatful to have you in our corner.

Love Always "Wade Warriors" Dwayne & Michelle

Tuesday, March 2, 2004 7:16 AM CST

The PET Scan results are in, and I am pleased to announce that the pelvis area they were concerned about looks great.
However, this is a new spot on her neck, that we needs to be looked at by CT scan.

I know test, after test. It's better than rushing in to do chemo if it is unneccessary.

Michelle & Dwayne

Monday, February 23, 2004 4:30 AM CST

Jaerah's Bone marrow's came out perfect. We are now waiting to take a PET scan. The doctor needs to compare these test results with the Bone scan and then make a decision. This test will be scheduled within the next 2 weeks. So check back then. Its a good thing that nothing is concrete, however a bit scarey.

Thanks for checking in.

Michelle & Dwayne

Thursday, February 5, 2004 4:32 PM CST

The results of Jaerah's MRI of the brain are fine. On Monday she had a bone scan, and yesterday bone marrows. The reults of these 2 test will not be available until late Friday or Monday.

As always once I receive and absorb them, I will be sure to post them.

Michelle & Dwayne

Monday, January 26, 2004 5:28 PM CST

On 12/30/03 Jaerah had a MRI, the results were very good. There has been no progression of the cancer to her spine, however there were some swollen lymph nodes in her lungs.

On 1/23/04 Jaerah had a CT of her spine and abdomen, and once again the results were good. The results confirmed the spots in her lungs were due to a server cold, and still no progression.

Within the next 2 weeks we are scheduled to take 3 test as follows:
1/29/04 MRI of the Brain
2/2/04 Bone Scan
2/4/04 Bone Marrow

As the results of the test come in, I will be sure to update you, and keep it on a more consistant basis. Thank you for your prayers and support ALWAYS.

The Wade Warriors Dwayne & Michelle

Monday, January 19, 2004 8:52 PM CST

Thank you to all who participated in the success of Jaerah's Spaghetti Dinner

Love The Wades

Saturday, January 3, 2004 6:58 AM CST

We have a visit to our new doctor on 1/9/04 to get our latest MRI results, and to determine our course of action.

*I added a Christmas picture*

Thank you for your continued loyalty & friendship.

Happy New Year

Love The Wades

Wednesday, December 3, 2003 1:38 PM CST

UPCOMMING EVENTS:

Spaghetti Dinner

Monday, October 13, 2003 9:41 AM CDT

We just wanted to let you know that Jaerah came home from the hospital on Saturday, and we straight to a Birthday party. Yes she is feeling well.

Michelle & Dwayne

Wednesday, October 8, 2003 7:56 PM CDT

Jaerah was admitted into the hospital on her birthday 10/6/97 for fever, chills, bone pain, and lip swelling. The doctors confirmed that she has a line infection. She under went surgery to take it out today, and is doing very well.

On a sad note, her MRI confirmed there are spots on Jaerah spine leading to her neck. This means the cancer is back. At this time we are not sure what our plan of attack will be.

My children do not know, so we ask that you do not tell yours until we have a plan of attack.

Thank you for your cooperation and understanding in this matter.

I will keep you posted.

Thank you for your continued love & support.

Michelle & Dwayne

Monday, September 8, 2003 3:19 PM CDT

We having another fundraiser, sponsered by the Blue Knights.
ANNUAL ESCORTED MORTORCYCLE RUN, PICNIC, & FUNDRAISER

Sunday - September 28, 2003

11:30 AM to 6:00 PM
RAIN OR SHINE

$20 ALL YOU CAN EAT & DRINK
**Run Pin included - under 10 free**

Ride Registration starts @ 9:00 am at Williams Harley Davidson
1100 US Hwy 22W, Lebanon, NJ
(Aprrox 14 miles West on US Rt. 22 from I287N)

RUN STARTS @ 11:00 AM SHARP

Run ends @ Merrill Park Grove #3
Iselin, NJ exit #131 GSP
Just off of State Hwy 27 in Woodbridge Twp.

Don't want to ride? Just come to Merrill Park and enjoy the fun. 12:00 noon registration at Grove #3

Please email or call with questions.

Monday, August 25, 2003 11:15 PM CDT

Sorry for the delay.

We did not go thru with the stem cell, because there were too many long lasting side effects.

We were going to do an antibody treatment, however we ran into a problem with the doctor's ethics.

Know we are at Cancer Institute of NJ where they are evaulating Jaerah's case.
-This is a small facility, and they dont see alot of neuroblastoma cases. They are working very hard to come up with a treatment plan for Jaerah (even if they had seen more case, you know Jaerah she is going to make them earn every penny).

Jaerah is going to enjoy going back to school for awhile.

Thank you for your continued love & support.

The Wades

Tuesday, August 5, 2003 10:42 PM CDT

We came home from the hospital on Saturday. All is well. Our last round of chemo starts on Monday, then we have 4 weeks off before we start the antibody treatment.

Dwayne & Michelle

Wednesday, July 30, 2003 11:51 AM CDT

Once Jaerah's counts come up we will be discharged from the hospital. Hopefully, by Thursday or Friday this week. A line infection at the site (on the skin where the IV gose in) was the cause of her 104 fevers.

She is out of the bed today and back to her usual self.

Thank you for your continued prayers.

Michelle & Dwayne.

Monday, July 28, 2003 1:22 PM CDT

Sorry for the delay in updating the webpage, things have been a bit crazy.

Jaerah ended up int the hospital on Sat. 7/26/03 for a fever.

Chemo ended last Friday, and since then Jaerah has taken a couple of test.

Bone Marrow - the results are still negative
Bone Scan - everything still looks good
MIBG - You may or may not recall this is the the test where Jaerah is injected with a rdioactive liquild that will still to the neuroblastoma cells, and they will light up as hot spots on the scan - This is showing some questionable spots on her knee.

A CT scan was done today, but couldnt be completed. Jaerah has just had it with the doctors and test. However it is being rescheduled, so the results will be compared to the MIBG and then we will know if there is cause for concern.

That all for now, please note new hospital information.

Love Always

Dwayne & Michelle

Thursday, July 17, 2003 8:06 PM CDT

Today was the 2nd day of 6th round of chemo, and champ is handling it like a pro.

We will conclude this round on Friday 7/18/03, after this we have round 7. Once she had complete her treatments we will began the antibody.

As always we will keep you posted.

Thank you for your continued love & support.

Love Always Dwayne & Michelle

Monday, July 14, 2003 10:08 PM CDT

Please note the change is Hospital Location

The previous method of care for Jaerah was in our opinion cruel & inhuman; we just couldnt subject her to this treatment method.

Jaerah is currently being treated at Sloan Kettering with an antibody that attaches itself to the cancer and fights it one on one. This treatment will ensure Jaerah a better quality of life while she continues her battle.

God Bless

Dwayne & Michelle

Monday, June 30, 2003 7:28 AM CDT

LATEST TEST RESULTS & TAX DEDUCTIBLE INFORMATION

The tumor that was removed on 6/20 appeared to be very mature nueroblastoma (which means the chemo worked). Her bone marrow test shows no signs of cancer in the bone marrow, or in the bone.

THANK GOD !!!!!!

TAX DEDUCTIBLE INFORMATION

All future donations can be sent payable to:

Kylie Ann Rosset Memorial Foundation, Inc.
P.O.B. 31
Rumson, NJ 07760

This is a non-profit oranization under code 501(c)(3) of the IRS; TAX ID# 33-1002653

Please make sure you put a note stating you would like the funds to go to Jaerah Wade.

Thursday, June 26, 2003 11:25 AM CDT

We are home, and Jaerah is ruling the house again. So I guess she is back to normal.

She is in a little pain, but she is not letting that stop her. Yesterday she was a her aunt's house jumping on the trampoline.

We are scheduled to go up to Boston, on July 1 for pre-admission testing. Then again on 7/8 for our 6 month stay.

God Bless

Dwayne & Michelle

Sunday, June 22, 2003 5:07 PM CDT

Jaerah is feeling good today. That person we all know and love is back to normal. Tommorrow, we are going to try walking.

Hopefully we will be out of here by Thursday.

God Bless

The Wades

Friday, June 20, 2003 8:11 PM CDT

Surgery went well.

Jaerah is resting comfortably. They wheeled her out from the OR, and she sat up and said "Where is my Daddy". The nurses described her as amazing.

We arent sure how long, she will be here. Hopefully it will only be 4 days.

The Wades

Tuesday, June 17, 2003 6:58 AM CDT

On Friday, 6/20/03, Jaerah is scheduled to have a 2nd surgery to remove the tumor again.

Please say a big prayer for us, as always we will keep you posted.

Thank you for your continued love, support, & prayers.

The Wades

Saturday, May 31, 2003 12:46 AM CDT

We are home from the hospital, and all is fine. In the upcoming weeks, we have to do a lot of test to prepare for transplant.

As always, I will keep you posted.

God Bless

Dwayne & Michelle

Monday, May 26, 2003 3:37 PM CDT

We found ourselves back in the ER on Saturday, due to a very high fever that wouldn't break. Jaerah is doing much better now, and is getting antibiotics until the fever completely goes away.

We arent sure when we are coming home, but hopefully it will be soon.

Dwayne & Michelle

Friday, May 23, 2003 6:08 AM CDT

I finally have pictures posted.

Please take a look.

Thank you for your support.

Michelle & Dwayne

Tuesday, May 20, 2003 9:56 AM CDT

THE SPAGHETTI DINNER WAS A HUGE SUCCESS THANKS TO ALL OF YOU

Thank you for your love & support,
with your donations and things you bought.
With each day our faith gets stronger,
it is you that gives us hope longer and longer.
Please keep Jaerah in your prayers and spirit,
because she will beat this thing I guarantee it.

Written By: Chaunta Branch (Auntie)

Michelle & Dwayne

Friday, May 16, 2003 6:29 PM CDT

We have completed our 5th round of chemo, and are scheduled to come home on Saturday, 5/17/03.

We recently found out that Jaerah has to undergo more surgery, 3 weeks from 5/15/03. Which means transplant has been pushed back until the end of June or the begining of July. That date is still uncertain.

The purpose of the surgery is to put Jaerah in the best possible position for her transplant. During transplant she will receive 2 more rounds of chemo, however that chemo needs to serve as a clean up of hidden cancer cells. Instead of all of it's effectiveness being directed on the piece of tumor that remains.

So we will continue you to grace all of you with our presence for a couple of weeks longer.

Smile.

Thank you always for your love and support.

We hope to see all of you at the Spagetti Dinner on 5/19/03, @ St. John Vianney School 5-7pm, 420 Inman Ave in Colonia, NJ 732-388-1662. Call or email me for Directions.

Love Dwayne & Michelle

Thursday, May 1, 2003 7:17 PM CDT

FUNDRAISER

All procedds will be donated to Jaerah Wade & family.

Spaghetti Dinner
(Compliments of the Cerami Family-owners of J.J. Bitting
33 Main Street, Woodbridge, NJ)

MONDAY, MAY 19, 2003
SAINT JOHN VIANNEY CAFETERIA
420 INMAN AVENUE
COLONIA, NJ
(732) 388-1662
*TAKE-OUT ORDERS AVAILABLE*

* 5:OO PM - 7:00 PM

TICKECTS AVAILABLE IN ADVANCE OR @ THE DOOR

$4-Children $5-Seniors $6-Adults

*********MONETARY DONATIONS ACCEPTED*********

Wednesday, April 30, 2003 1:25 PM CDT

We are planning to Spaghetti Dinner tentatively for May 19, 2003. During the hours of 5 to 7 on a 1st come 1st serve basis in the caferteria. Included is Dinner, Bread, Salad, Drink. Dessert will be served.

More information to follow tommorrow.

Thank you for your continued support.

Michelle & Dwayne Wade

Friday, April 25, 2003 11:38 AM CDT

4th round of chemo went exceptionally well.

Jaerah is such a trooper.

We start round 5 on 5/9/03, for 5 days.

Dwayne & I are considering have a fundraiser, to help cover the cost of going to Houston, TX for 5 months(Jaerah's double stem cell transplant).

Please email me your thoughts. We were considering doing it Memorial Day Weekend.

Dwayne & Michelle

Tuesday, April 15, 2003 8:44 AM CDT

I am pleased to report Jaerah is feeling well. She managed to stay out of the hospital for 15 days today.

Thank you for all of your prayers, support, and love.

Dwayne & Michelle

Monday, March 31, 2003 10:24 PM CST

We are home again. Hopefully we can have 2 weeks off. Jaerah 3rd round of chemo, went well (with the exception of the 2 allergic reactions). Thats not bad, and she feels great.

Oh, I almost forgot. Jaerah's bone marrow test came back. The results are all the cancer cells are gone out of her blood.

Our next scheduled visit is 4/11/02.

Dwayne & Michelle

Saturday, March 29, 2003 4:59 PM CST

Chemo is going very well. We had 1 minor set back (an allergic reaction), nothing some morphine & benedryl cant handle. We are scheduled to come home on Monday.

Please note new room & phone #.

Thanks

Dwayne & Michelle

Thursday, March 27, 2003 7:50 PM CST

And we're off. It's time for round 3 of chemo.

Let's start with the good news!!!

Jaerah's MRI showed that the cancer in her spine is shrinking. Praise GOD!

We had our 1st dose of chemo, and that also went well. Thanks to you, we are seeing the effects of the power of prayer. Jaerah is not out of the woods yet, so please continue to pray for us.

Please note the new room & phone #.

We love you, and thank you.

Dwayne & Michelle

Wednesday, March 19, 2003 8:36 PM CST

Okay now we are on Day 5, and they still cant find anything wrong.

Tonight she is going for a MRI of her head & neck. Oh maybe I didnt fill you in. On Wednesday Jaerah started getting bad headaches, and a very stiff neck. She was on 3 antibiotics, had a CT scan, and a spinal tap. All results are negative. They told me Jaerah has made the complicated patient list.

That's our girl!

Well, thats all for now. It been a stressful couple of days, but I will let you know the results when they become availible.

God Bless

Dwayne & Michelle

Dwayne & Michelle

Tuesday, March 18, 2003 0:01 AM CST

Okay, so we are back in 1 week earlier than planned.

A routine blood test, was accompanied by 2 low grade fevers. Which means we have to stay until the fever is gone & her blood counts come back up.

All we know right know is we are staying at least until Wednesday.

New Room # 3402 Phone: 215-590-6303.

I will let you know the results of her blood & site culture when I get them.

As always Thank you for your support.

Dwayne & Michelle

Sunday, March 9, 2003 21:55 PM CST

We're home!!

Hopefully the next 3 rounds will go as well as this one.

The next 3 weeks will be extremely busy for us:

3/13, 3/17, 3/19, 3/21 - blood work @ Phili (except 3/13)
week of 3/24 - Apheresis - stem cell withdrawal
3/25 - bone marrow test
3/26 - bone scan & mri
3/27 - 3rd round of chemo

We will keep it touch, and we would like for you to do the same.

Love Ya for keeping us strong.

Dwayne & Michelle

Friday, March 7, 2003 6:31 PM CST

We are finally settled in our room. It's been along day. The 2nd round of chemo is going really well, and if continues to stay this way we will be home Sunday evening.

New room # 7464
New phone# (215) 590-8719

Bye for now.

Dwayne & Michelle

Wednesday, March 5, 2003 11:27 AM CST

We are home once again, after being in the hospital since Friday, Feb. 28. '03. Jaerah is doing well, and the doctor's never found the source of the infection.

We are due back on Friday 3/7/03, for our 2nd round of chemo.

Thank you

Dwayne & Michelle

Sunday, March 2, 2003 8:49 PM CST

Some of you may or may not know that we are back in the hospital.

Jaerah had a fever of 102 Friday morning and we drove out at that time. Since then she has been on 3 antibotics, and is have a good day. They say the cause of the fever is an infection, however they havent been able to determine what kind.

We are not sure when we are coming home at this point, because chemo is suppose to start up again on Friday. The doctor will confirm all information for us tommorrow.

As always thank you for your support & prayers.

Until tommorrow.

God Bless!
Dwayne & Michelle

Friday, February 21, 2003 11:31 PM CST

WE ARE HOME :)

Jaerah is finally tucked in her own bed, and I can speak for her when I say it is good to be home.

Day 5 of chemo, didnt go so well. The side effects finally caught up to her. Relief eventually came around 6pm. Unfortunately these side effects may continue for a couple of days.

But for now we will enjoy our 2 weeks off. Our next scheduled visit, and admission is 3/7/03.

THERE WILL NOT BE ANYMORE ENTRIES UNTIL THEN, HOWEVER YOUR QUESTIONS, COMMENTS, & PRAYERS ARE STILL WELCOMED.

Dwayne & Michelle

Thursday, February 20, 2003 9:03 PM CST

We are now on Day 4

Chemo has gone extremely well. The 1st 3 days it had virtually no effect, by day 4 its starting to kick in. Dont fear Jaerah is a trooper, and she is not letting it get her down; her biggest complaint is that she wants to leave out of her room. However thats not possible because of the chemo comes in a glass bottle. Need I say more.

WE SHOULD BE COMING HOME TOMMORROW NIGHT.
YEAH! YEAH! YEAH!

Dwayne & Michelle

Monday, February 17, 2003 11:42 PM CST

HERES THE INFORMATION YOU HAVE BEEN WAITING FOR

TEST RESULTS:
2/6 � CT Scan - Normal
2/6 � Urine -Normal
2/7 � Bone Scan � L2 vertebrae has spots
2/7 � MRI � slight increase (originally thought to be scar tissue, only way to detect is growth or actually going in or biopsy
2/10 � Bone marrow � show cancer cells
2/12 � MIBG � Normal

Jaerah is classified as a stage 4 (High risk), and requires aggressive treatment

Game Plan:
1 � 1st cycle of chemo
2 � 2nd cycle of chemo
3 � stem cell withdrawal (stem cells create red & white blood cells, and platelets) blood will be tested to make sure there isnt anymore cancer in the bone
4 � 3rd cycle of chemo
5 � 4th cycle of chemo
6 � 5th cycle of chemo
7 � After 4th of 5th round, they will look at the spine to see if all spots are gone. If not surgery maybe required
8 � stem cell transplant
9 � stem cell transplant
10 � radiation beam to area for several min. for a couple of days*
11 � oral medicine for 6 months

Chemo attaches to the cells that divide rapidly; hair, esophagus/stomach, and bone marrow. This is why she needs a stem cell transplant, to help her body produce these healthy cells.

Updates on her 1st night of chemo to follow:

Thank you and God Bless

Michelle & Dwayne

Monday, February 17, 2003 3:46 PM CST

We have made a lot of room changes, and most of you probably didnt realize the change listed.

We are now in RM 7463

(215) 590-6753

We left on Sat. and when we returned on Sun. we were placed in another room. Our roommate had the whole family staying, so we were switched to a room where the child had a deep congestive cough. (I dont know what the child had), but I do know I requested a room change.

And now I'm back to in the room we started in on Fri.

Sorry for all the confusion. I still have a lot of info. to post. Please bare with me.

Michelle

Monday, February 17, 2003 3:46 PM CST

Friday, February 14, 2003 4:45 PM CST

We are in RM 7077, and will be here until SAT.

(215) 590-6761
More Info about todays events to follow.

Dwayne & Michelle

The Beginning

Most of you are wondering how all of this came about; well I will start at the beginning:

Back in April '02, Jaerah had a stomach virus; she had vomit at 20x's that day (no exaggeration). We took her to the Ped. and he confirmed it was a stomach virus. Later that night she complained of stomach pain, so serve it woke her up. She began screaming, and jumping off the couch. We call the Ped on call and took her up to Overlook Hosp. They took and x-ray, and she was released on Monday. We were home for 2 hrs before the Ped had us go back up to Overlook for more tests. He said the place where her pain is would indicate appendices however she was having no other symptoms.

PAY ATTENTION THIS IS WHERE IT GET REAL INTERESTING

1st Jaerah took an Ultrasound and they immediately did a CT Scan without giving me any results. I was told the Ultrasound showed a mass, and the CT confirmed it however it isn�t located where she was complaining of pain. So they still don�t know why the pain. The following Monday we took an MRI this test just confirmed it was something there with fluid in it.

All of this time Jaerah had been in extreme pain. ONCE SHE TOOK THE MRI, THE PAIN WAS GONE. No one could explain it. We went down to CHOP at the April �02; at that time we received word that it could be cancer. Surgery was performed on May 14, 02, and she has been in remission since.

Friday 1/31/03, Jaerah started complaining of back pain. 2 days went by and she was still having it. By, Sunday Dwayne & I were a little concerned, because 2 days is the limit before consulting a doctor. The pain got a little better by Tues 2/4/03, but on Wed. 2/5/03 it was so bad that by the end of the night she couldn�t walk. Wed 2/5/03 we called the Oncologist, and they got back to us on Thurs. 2/6/03, and we went down for tests. Jaerah was admitted and released on Sat. 2/8/03. THE PERFORMED AND MRI ON 2/7/03 AND WHAT DO THINK HAPPENED. THE PAIN STOPPED. Once the doctors performed the right kind of test the pain stopped.

By the way the doctor just said on 2/12/03 she cant explain why the pain just goes away, and Jaerah hasnt had any pain meds. I told her I knew why, of course she asked. My response was, IT IS NOTHING BUT GOD. They have consulted all the medical books, and experts and there is no explaination. Both times it was GOD who brought this to our attention with pain, when doctors said there was nothing wrong.

So I say to all of you GOD IS GOOD, and he will bring OUR family thru this. LET US ALL PRAY TOGETHER AS 1 JOINED FAMILY.

PLEASE KEEP YOUR FAITH, AND KNOW THAT HE WILL SEE US THRU.

Wednesday, February 12, 2003 11:49 PM CST

Today we took our MIBG test, the results will be available on Friday.

We are getting Thursday off. ;), however Friday will be a rough day. Our day will start off with surgery. Once her Broviac (central line - like an IV but in the chest) is placed in, Jaerah will her 1st chemo treatment which will last approx. 48 hours.

The next update will be on Friday.

Thank you for your continued support.

Dwayne & Michelle

Tueday, February 11, 2003 4:14 PM CST

Today, we went to get an injection for tommorrow's MIBG test. While we were there I received the results from Jaerah's bone marrow test. It has been confirmed, the cancer is back :( Instead of starting chemotherapy on Monday, it has been pushed up to this Thursday or Friday. Jaerah will still take the MIBG, these results will be used to show how effectiveness of the chemo.

Thank you & God Bless.

Monday, February 10, 2003 4:22 PM CST

Today Jaerah had a bone marrow test. This test takes fluid and cells from the bone marrow using a hollow needle. The purpose of this test is going to establish if the cancer has spread to her bone, and the results will not be available until Wednesday 2/12/03.

Next we are planning to take a test called MIBG. She will be injected with a radioactive material that will accumulate in the neuroblastoma cells only. On the scan they will appear as a hot spot. If it is confirmed that these spots are neuroblastoma, then Chemotherapy will start on Monday 2/17/03. If not than more test will need to be conducted.

Once again, thanks for your support.

Saturday, February 8, 2003 6:36 PM CST

We just came home from the hospital after a 2 day stay, and here's what we know:

There are spots on Jaerah's spine, it has not been confirmed that the cancer is back, however it is very likely. More test will be conducted during the upcoming weeks, and we will try our best to keep you informed.

Jaerah's spirits are up, and she feels good (that mouth of her's has been non-stop).

Thanks for all of your love, support, & prayers during our time of need.

Dwayne & Michelle

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----End of History----