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Welcome to Hope's Caring Web Page. It has been provided to keep people updated about her. If you so desire, please leave a note in the Guestbook and we welcome any GOOD news stories.
Poem by Hope 10/18/04:
Cancer is….going from one day to another. Cancer is…endless treatments. Cancer is…lots of nausea. Cancer is…losing hair. Cancer is…powerful drug after powerful drug after powerful drug. Cancer is…becoming radioactive. Cancer is…pharmacy visiting and medicine sipping. Cancer is…learning a whole new medical language. Cancer is…making blood transfusions “normal”. Cancer is…getting used to anesthesia. Cancer is… testing limits. Cancer is also…becoming closer to family and friends. Cancer is…a builder of strength. Cancer is…not sweating the little things, but being glad for simple pleasures. Cancer is…really seeing the world. Cancer is…believing in miracles. Cancer is…knowing anything is possible. Cancer is…finding your true courage. Cancer is…figuring out what you’re made of. Cancer is…not giving up on hope. Cancer is…coming in touch with God.
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Journal
Monday, December 18, 2006 3:27 PM CST Hey again guys,
Sorry for being so slow on the updates! My life has been very busy, but in the best possible way. Most of all that activity has been for normal, everyday teen stuff - some good and some bad (*cough* HOMEWORK *cough*)! lol
I have been feeling really well and things have seemed to be pretty OK right now. I had an MIBG scan on November 8th. The results were "neutral." The tiny spots that I had had since the beginning were gone, but there were tiny new spots. So, it's pretty much the same. However, this time I am on absolutely no treatment whatsoever. Before, I was on Accutane, but I have stopped that a while ago because it was irritating my skin really badly. Now, I have absolutely nothing.
Another new thing medical-wise: I have started Hormone Replacement Therapy. We went to see Endocrinology in the beginning of December. They told us why we should consider it and what to expect, etc. It was pretty boring, actually. lol We decided to start it, and I've been on it for about a week now. All I have to do is put on a tiny patch, which I change every 3-4 days. It is finally something easy!
That's about it on the medical side of things. As for the holidays, we are going to Disney!! I am so excited. We usually go to Grandma and Grandpa B's, but this year they are going to be away, so we decided to take our first ever Christmas vacation, and we chose somewhere warm! We'll be staying at the hotel right near the Disney Boardwalk hotel, so that should be fun.
Hope everyone has been having a good year! Merry merry merry - and healthy - Christmas!
Love Hope
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