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Hey Kristen and Family,

Wow, what a precious picture of the kids! I can't believe how tall your son had got! WOW...

Your Christmas sounded wonderful, and guess what Jordan got for Christmas, the WII too!!

Praying 2009 will not be as eventful as 2008. Praying for GOOD scan days, lots of chocolate and tons of money raised for the CURE!

Sending lots of love,

Susan and Jordan
Jordan's place <Susan2956@yahoo.com>
Baton Rouge, - Wednesday, December 31, 2008 7:45 PM CST

Hi Genna... Keeping you in my thougths and prayers.

God bless
Debbie/Angel_Wings
- Wednesday, December 31, 2008 3:06 PM CST

Thanks for your message in Lexie's guestbook- I am really trying to figure this mission out- I wish I could just dial up the Universe and get some clearer directions- I would just Do It, if I really could be sure what It is- I guess that's part of the challenge -
Funny thing, as I was reading your sympathetic post about the ER visit, I was thinking, Lexie wasn't upset much at all at having her day disrupted, the ER folks were Very nice, her nurse oncologist was very sweet about being the one to tell us we had to go the ER , and not our JF clinic, and all in all, it was an OK thing to have to do- At least I Have a kid to toodle into Boston to sit with for a while- Ya know ???? I'll bet our friends without their kids would have given their eye teeth to take this trip- Sillyness, but I was feeling grateful that she wasn't in pain, and the whole thing was a minor glitch in our vacation week, which has been upturned by her being sick anyway-
Going on and on, I know, but thanks for writing- I so value our internet kinship !!!!
Glad Christmas worked out and you pulled it off !!!! Poor Rosy, though- At least she has the Wii to take the sting out of any disappointment-
Thinking of you Tons as scan time comes close !!!!
Happy New Year's Eve !!! We are hunkered down for a Snowy one here- 8 inches predicted, and snowing Hard !!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams

alice williams <awilgent@comcast.net>
lakeville, ma. - Wednesday, December 31, 2008 9:11 AM CST

Dear Camiolos,

Thank you so much for the utterly delicious cookies. Your recipes are certainly the best -- I think you should write a cookbook for the next Coffee House at St. Mary's. Anyway, I don't know which cookie I liked the best, but those little nutty tarts disappeared first. Thanks for stopping by as I was dragging my dogs home from their brief walk. They were happy to see you (and the cookies)!

I know that you had a wonderful Christmas, full of extraspecial surprises. I hope that your New Year will be healthy, peaceful and calm. I am looking forward to helping you again at the Coffee House and will continue to look for the Joke Books that I promised for Genna.

Marta Blumberg <knitintune@hotmail.com>
- Tuesday, December 30, 2008 11:03 PM CST

Hi Genna!
Happy New Year! Hope you had a great holiday and got everything you wished for! We are looking forward to seeing you this spring :)
-Kathryn
Kathryn Seidman <kathryns@eden.rutgers.edu>
- Tuesday, December 30, 2008 7:40 PM CST

holy cow- did Andrew grow a foot?!
great to see your Christmas pics... just dropping the line to say I was here :)
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Monday, December 29, 2008 9:57 PM CST

Hello friends,
Like so many others who have posted, I luvvvv the new photo. Miss G looks quite the chic young lady, Miss Rosie is stylin, and Andrew is the very handsome brother. I caught up on your journal entries and whew! Never a dull moment with you all. I finally had a chance to update Carly's CB site today. Life is just so crazy right now. Her caseworker came this morning, I thought the appt. was tomorrow even though I had it written down for today. So, thinking I finally had a day off to catch up on laundry, help Carr with her homebound studies, and even sleep in a little I answered the door in my robe, teeth not brushed, and no shower! I was so embarrassed. She is new to Carly's case and so we had never met before. She was great about it, said she knew I have a lot on my plate to juggle, but I still wanted to sink in to the floor. Still, she was very nice, got the latest updates on Carr and said she would just do a phone visit for the next 90 day check-in. I don't blame her, I looked pretty scary:) If I don't check back in for awhile, please know I have the scan date for the girls and will be praying for good reports.
Blessing, Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN - Monday, December 29, 2008 5:38 PM CST

Love the new picture..so sweet! I am so lucky to have 2 G's in my life!! I love my ornament. Tell G Thank You! It goes in my special box of special ones. I love home made ones the best! I will pray for scan day. It will be good!!! 2008 had to many UGH's that 2009 has to be good. It just has to be!!
I thought I lost the whole page..I turned my head and I had a blank screen..ugh...sending this off while it is still here.
Hugs,
Ori
Ori
Kingsley, PA - Monday, December 29, 2008 12:53 AM CST

Love the new picture! I am so glad Emily was able to make it home for Christmas, it should be easier getting back. The wind is melting all the snow right now. I talked to our friends in Seattle today and it was raining there.
I hope you are having a wonderful break!
Love always,
Reca

Reca Thomasson <rmthomasson@cableone.net>
Lewiston, - Saturday, December 27, 2008 11:16 PM CST

The children are GORGEOUS!! They look so Happy!!!!
Love and Blessings,
Judy
Lisa's site
- Friday, December 26, 2008 9:14 PM CST

Love the photo - my goodness Andrew will be as tall as the tree next year.
Diane
- Friday, December 26, 2008 3:55 PM CST

Merry Christmas Cams!
Doug S <dsetzer@27seconds.com>
Columbia, MD - Friday, December 26, 2008 9:44 AM CST

Merry Christmas Cam's!! I loved the Christmas card and the new ornament to add to my collection! I just love home made ones better then store bought ones!! I tried to dance but I do need more lessons! I had fun and that was the important thing. Give all the kids a hug from us. And I am holding on to hope with my finger's dug in deep!! It won't get away!! Love you all!
Many hugs,
Ori
Ori <harley00@nep.net>
Kingsley, PA - Thursday, December 25, 2008 10:23 PM CST

MERRY CHRISTMAS TO ALL !!!!
We love you today and everyday !!!!!
Enjoy the lights and the music and the wonder of this day !!!!
FROM ALICE, NANCY, EMILY AND LEXIE !!!!!

alice williams <awilgent@comcast.net>
lakeville, ma. - Thursday, December 25, 2008 9:14 AM CST

Waiting on the children to wake up... Have a BLESSED Christmas!

Love,
Judy
Lisa's site
- Thursday, December 25, 2008 4:11 AM CST

As we anticipate our Savior’s birthday I wanted to let you know how much you and your family mean to me! It is a pleasure and an honor to share in your journey and pray for you. Thank you for letting me be a part of your life. Thank you for sharing ours!

Merry Christmas!
Love and Blessings,
Judy

Lisa's site
- Wednesday, December 24, 2008 7:04 PM CST

Merry Christmas - I am always first!!!
Thank you for that inspiring message of Hope - and peace on earth.
So Glad that Em arrived back after her epic Advenure.
Love and prayers
Diane <dikerno@hotmail.com>
- Wednesday, December 24, 2008 2:49 PM CST

Merry Christmas to the Cam's.....I as so blessed for your friendship....even from afar. God bless you.
Connie Powell
West Monroe, LA - Wednesday, December 24, 2008 12:41 AM CST

Merry Christmas Kristen and family!!

Just stopping by to wish you all a wonderful Christmas. It's been "A YEAR" for you all, you handled things so well.

It's been such a joy to come along side of you on this amazing BT journey.

No matter what you are going through, you say something to make us all smile, and laugh many times too. I love your cute sense of humor!

Thanks for your prayers and support too.

OH!!! Loved the picture and especially the letter with all your wishes. How precious. You have such a wonderful family.

Blessings to you,

Susan and Jordan
Jordan Amato <Susan2956@yahoo.com>
Your friends from Louisiana!!, - Tuesday, December 23, 2008 9:50 PM CST

Hey Genna! Looks like you had a lot of fun in the snow! I hope you have a great holiday!!! I hope to see you in the spring!

Kaitlyn Curran
- Tuesday, December 23, 2008 6:35 PM CST

Dear Kristin,

Thinking of you this Christmas season and your wonderful family. As always life is so hectic in the Camiolo family. I know your Christmas day will be filled with the greatest gift of love, all your family and friends. You are an amazing mom, and supportive friend to so many of us. This Christmas I am so thankful for that.

I hope and pray that 2009 will be a better year for all the children and families fighting brain tumors.

Please know that I may not be writing often, but I am always here reading. Please tell Genna and Rosie I said Merry Christmas and give them one extra hug from me.

With Love & Hope Always, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Tuesday, December 23, 2008 12:49 AM CST

Kristin, sending the Blazing Yule your way. Things here aren't really fa la la la either. . .BUT I'm trying SO hard, for the sake of the children. Keep your chin up, you're amazing!! Keeping my fingers crossed that Em makes it home safely today.

xoxoxoxo~
Melissa
www.caringbridge.org/tx/katsierane
Melissa Brock <melissa.brock@blockbuster.com>
TX - Tuesday, December 23, 2008 10:12 AM CST

I hope EM made it home safe. Have a very Merry Christmas!
Angie Gubser
Wheelock, TX - Tuesday, December 23, 2008 8:43 AM CST

It has been far too long since I have signed in; but, please know I am checking in often, I just don’t always have the energy to let you know I have been here! God Bless you and know you are always in my prayers!

I LOVE your winter wonderland; however, I am praying Emily is home now!

Love and Blessings,
Judy

Lisa's site
- Tuesday, December 23, 2008 1:47 AM CST

first, and most importantly, I HOPE Em got home!
second, I was stupid enough to buy only one bag of cadbury balls. This is NOT ENOUGH as you clearly know, and I am beginning to become envious of yours. I suppose I could go on a hunt, but I have a feeling the stores will be OUT.
third- I LOVE the snow day photo!
love to you all,
Christine
Christine <mithril971@gmail.com>
Hillsborough, NJ USA - Monday, December 22, 2008 8:47 PM CST

I was watching the news and thinking about Emily. I hope she can make it there, there is just so much snow! I can't remember the last time we had this much snow in Lewiston, I know it was before the boys were born! They said Portland, Spokane, Seattle....all the airports were having issues. They are running out of de-icer! How does that happen?! I thought about Emily coming to see us instead, but the drive here wouldn't be good either!
We are thinking about you always. The boys were writing to the girls today.
Take care,
Reca
Reca Thomasson <rmthomasson@cableone.net>
Lewiston, ID - Monday, December 22, 2008 0:21 AM CST

Hey Genna! It's Brooke from the lacrosee team...just wanted to wish you and your family a happy holiday and new year!! hope you are doing well! hopefully we'll see you in the spring at one of our games :)
Brooke Cantwell
Moorestown, NJ United States - Sunday, December 21, 2008 3:16 PM CST

Wishing you and your family Happy Holidays!
Please know that you are always in our prayers.

God bless

http://groups.yahoo.com/group/Angel_Wings/

Debbie/Angel_Wings
- Saturday, December 20, 2008 5:09 PM CST

Hi friend- we have snow, too- we lost a sweet girl recently too- Fa, la, la, is harder this year, but I am getting there, one small step at a time- The kids are into it- That helps- Sadness should not be allowed near the holidays- Children should not die near the holidays, and people should Not scan near the holidays !!! Not !!!
Anyway, we are doing the things that bring Christmas cheer, and they are helping- Some, more today than last week-
So sorry about your dear Hadley friend- She fought so long and hard- She can fly free with our little Devon-
Take care, and let the kids carry you along !!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Saturday, December 20, 2008 4:29 PM CST

Great reading - fa la la - well it made me smile. I am so jealous of the snow - guess the other mans grass is always greener or covered with snow - whatever the case may be. Prayers that the family arrives safely - fa la la - rememeber if you can't find the Christmas spirit - close your eyes and let the Christmas spirit find you - I know there are always those Yikes in the background though.
Take care
love and prayers
PS - Doing some scrapbooking and came across your last years Christmas photo card - made me smile - bet Andrew has grown a lot since then - I am now officially the shortest in my family - well have been for a few years now once Mitchell got his growth spurt which was late coming - not till around 16 did it kick in
Diane
Australia - Friday, December 19, 2008 7:09 PM CST

Hey Genna!
It looks like you had a great time in the snow today! I am so jealous that you got to play in the snow! I hope you had a great day and i want to wish you and your family a Merry Christmas & Happy Holidays!! Hope it's a great one!! xo
-Mallory Tornetta
Mallory Tornetta <malloryt@eden.rutgers.edu>
- Friday, December 19, 2008 6:20 PM CST

Hey Genna!

Thank you so much for the poster and the stickers for our run! It made us run so much faster! We loved your Christmas card, thanks! I hope you have a great Holiday and you have so much fun!
Wishing you all the best,

Kelly Nangle <knangle@scarletknights.com>
Piscataway, NJ USA - Friday, December 19, 2008 12:51 AM CST

Hey Cams!
We got the most wonderful picture and letter in the mail today! Joey raced to put the ornament on the tree, you are so good! I hope you are getting things done and aren't too stressed. I had my last day of school today, so my "getting organized" just got a lot easier. The problem is I only have part of tomorrow without the boys.....I have to hit the Christmas parties at their school. We did get the tree up so that's good!
Take care. I so wish you a peaceful and happy Christmas and new year.
We love you all!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, December 18, 2008 11:44 PM CST

Hi Genna and family,

Thank you for the Christmas card! Have a very Merry Christmas and a great New Year. Hopefully we'll see you at a game this spring. GO RU Lacrosse!
Brian
Brian McGurn
- Wednesday, December 17, 2008 11:15 AM CST

Came by to wish your family well at the Holidays, and saw your post about your friend... please add my thoughts and prayers for Hadley's family...
Peace, Love and Snowflakes...
Maria, Wm's mom <willjim95@hotmail.com>
Springfield, MA - Wednesday, December 17, 2008 8:27 AM CST

Genna dear,
I love your new glasses. I need new ones myself. Maybe I should talk to your stylist - those are beautiful on you!
Hope you are having a blessed Advent... I sure do miss seeing you at Christmas, and I want you to know that even though my colored tree lights are too many miles away for you to see, I still think of you when I look at them.
love, Aunt Christine
Aunt Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Tuesday, December 16, 2008 11:32 PM CST

You always say it so well. I couldn't function today, I kept thinking about Hadley and trying not to cry.... I shouldn't read until everyone is in bed, what was I thinking? It just isn't supposed to happen, kids are not supposed to die.
Did I tell you I don't have our tree yet either? I am so running in circles these days!
Take care, we love you all!
Reca
PS The boys are loving their advent cards!
Reca Thomasson <rmthomasson@cableone.net>
Lewiston, - Friday, December 12, 2008 8:44 PM CST

Dear Kristin,

My heart is broken also for the Fox family. I have followed Hadley's journey for years. I fell in love with this family too. Angela is one tough, beautiful lady who has inspired so many.

I am so sorry that you have to continuously watch what this horrible disease does to these beautiful children. Please take care of you. Know how much we treasure you, your love and endless support of us.

Hugs to Genna and Rosie for me... : )

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Friday, December 12, 2008 5:44 PM CST

K - that was an awesome post to Hadley. I feel so much the same way about the Fox Family. This one hurts much worse than some of the others have....
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Friday, December 12, 2008 10:50 AM CST

Love the new glasses Genna and love love love that smile.
Hugs and kisses for you all
Take care
Diane
- Friday, December 12, 2008 2:55 AM CST

Dear Kristin,

Still out here, still reading, hoping, and at times like this hurting, for madness that brain tumors continue to bring in to your lives. I think you for one Kristin never take a moment for granted. Every day in your children's life is embedded in your memory. Even if it has to be before chemo...and after chemo. You have always gone above and beyond being a great mom. Our children just happen to be a little extra special.

I wish you and your entire family a wonderful, love-filled Christmas together. I know with that huge Camiolo clan...it will be! I am happy that we will be able to escape Christmas once again this year. It is still the best medicine for us.

Thanks Kristin for always being there, checking in.

"Love the Time" some one should make a Christmas card with that saying on it.

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Thursday, December 11, 2008 8:39 AM CST

O.k. I forgot to tell you something! First, I LOVE G's new glasses! But second, our local college is getting a new mascot and you will never guess what it is going to be......a YETI! How funny is that?! I thought of you and Uncle John!
Just had to share!
Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Wednesday, December 10, 2008 11:27 PM CST

Absolutely love Genna's new glasses!!! She sure is looking spiffy.
Sending Smiles & Hugs, Anne
(Grammy to Charlotte & Emily)
Anne Taylor <AET1955@aol.com>
Philadelphia, PA USA - Wednesday, December 10, 2008 7:54 PM CST

Hi Cams!
Just thinking about you so much all the time. Kristin, I so know what you mean. Pictures seems to tell the life, before and after the chemo junk. I so tell the events in our life as before and after and it makes me crazy. I try not to, but it's just there. I think about Joey and Rosie.....more of their life has been with a sibling with this junk than not.... I just want it to all go away. No more suffering for any of our babies and families.....o.k, I'll stop. I just want you to know....I know what you mean. You always say it so much better.
And it's scary how we have 2 sets of twins....o.k., except that Joey talks way more than Rosie! Joey is so Ninja man when he gets in bed with us. He has been better the past couple days, but for about a week he was up at all odd hours kicking and pushing on us!
Good luck with all the holiday fun. I am so behind. We were going to get our tree last weekend and I ended up with kidney stones....we have a few things up and that's about it! Not a single cookie baked yet!
I will conclude the book now! We love you all! Wishing you much peace this holiday season.
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Wednesday, December 10, 2008 0:11 AM CST

Your family is amazing and such an inspiration! I can't imagine how nerve-racking the time leading up to the scans has got to be. I continue to storm heaven's gates with prayers for Genna and Rosie. I thank you for sharing the prayer needs of these other wonderful and brave warriors as well. The video of Hadley had me to tears. What a special little sweetheart. I am with you every step of the way in prayer and in helping to find a cure. God bless your family and every other family dealing with this beast. I pray constantly that a cure would come soon.

With love and hugs,
Tammy at Angel Wings
- Monday, December 8, 2008 5:51 PM CST

Oh K -
I couldn't even finish the video of Hadley - I was bawling at work and it just hurt so much I couldn't handle it... Not sure how Mama Fox makes it, waiting for the helicopter to arrive...

But - glad to hear you're making painting progress. And sorry G is still having food issues. Hopefully that resolves itself soon...

Anywho - thinking of you always :)
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Tuesday, December 2, 2008 11:09 AM CST

glad I'm still making a musical impact on your offspring...and that jumpshake your booty isn't my only legacy :)
Emily <emilyappert@gmail.com>
The middle of nowhere, WA - Monday, December 1, 2008 7:12 PM CST

I am so grateful for you and your family! You have made me smile when I wanted to growl. You made me laugh when I wanted to cry. You give me hope when I feel despair. Thank You for all you do. I think your G has a direct link to GOD! She must of been storming the heavens for us. Give her a mighty hug from me and tell her Thank you! I know you all pray for us and I am grateful. I have hope again!!
And Yes K 3 hours is way to far for you to take D to a match!! But Thank you anyway!
I love you guys!
Hugs
Ori
Ori
Kingsley...for now, PA - Sunday, November 30, 2008 10:18 PM CST

I'm stopping by to let you know I'm thinking of you all and keeping you in my prayers daily.

God bless,

Tammy at Angel_Wings
- Saturday, November 29, 2008 1:53 PM CST

Do you know how many days till Jesus birthday???

Christmas countdown at FlashBannerNow.com

But who is counting???

Love and Blessings,
Judy and Lisa
Charlotte, NC
- Friday, November 28, 2008 10:25 AM CST

Hello Cams,

Just thinking and praying for all of you. This is a weird way to send out an invite; but while I'm here, when can we do Lord's Day at our house?
Carl & Therese Moccia <carlp1211@aol.com>
- Thursday, November 27, 2008 11:07 AM CST

Hi Kristin and the whole gang,
Just stopping by to tell everyone Happy Thanksgiving. May you have a day filled with peace and happy moments.
Love, Lisa
Jacob's mom
Lisa <efield5@yahoo.com>
West Covina, CA - Thursday, November 27, 2008 9:55 AM CST

Love and Blessings,
Pete, Judy, Christian, David, Rachel and Lisa
Charlotte, NC
- Thursday, November 27, 2008 6:02 AM CST

Hey Kristin,

Sorry it's been quite a while since I've signed in. Still checking up on you guys.

Yes, I've been very UPSET about DB, and all the other warriors who are in the heat of the battle. Really I have not been on the list in so long, I was getting so down.

Anyhow I'm here to wish you guys a wonderful Thanksgiving Day.

Please tell Andrew I'm really,really proud of that kid!

And I'll say an extra pray for your hubby, running and the BEAR, OH MY!!!!!!!!!!!!!!!!

Blessings my sweet friend,

Susan
Jordan Amato <Susan2956@yahoo.com>
Baton Rouge, - Wednesday, November 26, 2008 8:30 PM CST

I could not let the time pass without saying a HUGE Thank you for all of your GB entries, your support, your memories and your prayers! As you sadly know all to well, sitting in those hospital rooms is wearing on a mom, no matter how short or long the time is. It was such a pleasure to log in and see you had been by, spreading good wishes and hope! Thank you for prayer for all of us! You are a wonderful person, with such a pure heart, may you always feel God's blessings in your life!

So sorry for all of the sadness...

I just wanted to say a HUGE Thank You and HAPPY THANKSGIVING!!!! Lokos like we will be heading back to CHOP after the first of the year....

Love and Blessings,
Judy and Lisa

Charlotte, NC
- Wednesday, November 26, 2008 7:30 PM CST

I'm lifting all of your prayer request up to the Lord and continue to keep you close to my heart and in my prayers. God bless Andrew for that poem!!! I'm sure it speaks for many.

I hope you and your family have a wonderful Thanksgiving.
Tammy at Angel_Wings
- Wednesday, November 26, 2008 5:13 PM CST

Ah, Kristin- EEks, and Boohoo's and Yeah for Andrew abound in this entry of yours !!!!
Thank you So much for your kind words to Devon and her folks- I am a bit obssessed with her guest book of late, and I Know that those words and others are what is keeping her parents hanging on !!! So, thanks mucho for that !!!
A BEAR ??? Where the heck do you Live anyway ??? I grew up all my life outside of Phila, and we Never, Ever saw a Bear !!! Yikes !!!! Tell Dave I said "Don't be a Fool !!!" You Can't play with bears !!! Sorry Dave, But Geez !!!
And the Boohoo's are resounding with me- It is NOT fair !!!! These folks do NOT deserve this !!!!
Thanks for writing - You speak to my heart, and I need that right now, what with all the crud happening !!!
Take care, and have a great Thanksgiving !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Tuesday, November 25, 2008 9:22 PM CST

I've got possums in my roof, and Kangaroos jumping down the road sometimes!!! Not quite as impressive as a Bear on the road - that is scary!!! I'm with you no running in the cold and dark - bear or no bear.
Well done Andrew - we are all proud of you. Now he could outrun the bear I'm sure - but lets not let him try.
Diane <dikerno@hotmail.com>
- Tuesday, November 25, 2008 3:32 PM CST

HAPPY THANKSGIVING CAMIOLO'S. . .Thinking of you always, and always thankful for our connection. . .for our walking on this path through a parallel universe. For you Kristin, always having the right words. . .SO thankful for the good and bright things along this often dark journey.

HOORAY for Andrew!! I know you're proud. We're all proud.

xoxoxo~
Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa Brock <melissa.brock@blockbuster.com>
TX - Tuesday, November 25, 2008 1:13 PM CST

Hello Camilos family,
This is my first visit to your page and I've been reading your journal. Genna is such a strong and brave girl who clearly has a family who loves her very much. I hope you finally got your internet problem resolved. Yaaaay for high speed internet!! I really enjoyed all the photos. Please know I am adding your family to my prayer list and I'll be keeping each of you close to my heart and in my prayers daily.
Sending love and hugs,
Tammy at Angel_Wings
- Saturday, November 22, 2008 4:54 PM CST

Thinking of you!!
Angie
Angie Gubser <queenie_adb@yahoo.com>
- Saturday, November 22, 2008 12:01 AM CST

Thank you So much for writing to Devon- I know how hard it is to become aware of yet another sad tale of brain tumor gone south, but I really appreciate it !!! She is Such a sweetheart, and her parents are the dearest things !!!!
I think a lull is just fine, we all deserve a nice lull now and again, although I am sorry about your friends who are struggling !!!!
hang tight-
We will meet !!!! Some day !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Thursday, November 20, 2008 8:19 PM CST

Genna,

Thank you so much for your sign! It certainly pumped Kelly and I up for our last training run. Sunday's race should be interesting, but we will definitely be thinking of you the whole way!
Laura Brand <lbrand@sk.rutgers.edu>
Somerset, NJ - Thursday, November 20, 2008 4:46 PM CST

Yeah for high speed!!!!!
Take care
Diane
Maryborough, Australia - Sunday, November 16, 2008 5:55 AM CST

May our earnest prayers and supplications
bring comfort and reassurance.

**AN INVITATION TO ALL PRAYER WARRIORS**

The Prayer Warriors at Angel_Wings
are holding a Prayer Vigil on Wednesday,
November 19th, between 8-9 pm EST for
all the children, teens and adults on our
prayer lists and our AngelWingsRemembers
families.

Thank you for joining us.

Angel_Wings Prayer Warriors

polly from angel_wings prayer warriors
- Saturday, November 15, 2008 12:29 AM CST

This will be our last sign in before we head to Duke. I wanted all of our friends to know that we will still be praying for you and thinking of you, no matter what is going on in our own lives.

Have I said yet how WONDERFUL the photos are (If not, may I just say WOW)!!!!

Love and Blessings,
Judy and Lisa
Charlotte, NC
- Tuesday, November 11, 2008 7:17 AM CST

HOORAY FOR STABLE EYEBALLS!!!!!
It was so nice to see you guys at the race.
Love & Hugs, Anne (Charlotte's Grammy)
Anne Taylor <AET1955@aol.com>
Philadelphia, PA 19124 - Saturday, November 8, 2008 1:13 AM CST

Dear Kristin,

The collage of pictures from the Race for Hope are amazing! So many people there, it just really overwhelms me. I love the picture of Genna marching to the finish line. Please tell her I am so proud of her finishing...and at her personal best time. You guys go above and beyond always, supporting events that will help find that cure.

Please know that Genna and Rosie are always in my thoughts and prayers. I check in always, even if I don't write. If you ever...ever need anything (and I mean anything) please do not hesitate to write me.

Love You Guys, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Wednesday, November 5, 2008 9:22 AM CST

So very proud of you all! Did Andrew's team win? I know those moments when your legs just don't seem to hold you up but somehow they do and you keep fighting! Thanks for fighting so hard! Love you guys!
Ori <harley00@nep.net>
- Tuesday, November 4, 2008 1:33 PM CST

Hi all,

It was so good to see you guys yesterday & spend some time with you at the end of the race. I have to admit Kristin, your cookies kept us going the last half mile of the race... I told my sister-in-law all about them and she too kept pushing on... Thank you for sharing, they were out of this world good! I'll race for those anytime :)

Congratulations Genna! I am so impressed and glad that you were able to meet your goal. Devon thought that was very cool and she said she is going to try to finish under an hour next year. I am not certain how... she was sooo pooped when we got in the car that she slept all the way home. Paige though... she enjoyed the stroller ride the entire way. Sorry got a late start this year.

Kristin, I love the picture of you and Devon! and the Vikings! Actually, love all the pictures... you are so darn diligent and fast and I don't know how you do it you SUPERWOMAN & SUPERMOM!

I think there were actually three times more people this year than last... which is great (hoping they are supporters not sufferers). But we all manage to finish thank GOD!

This race was a little harder for me this year being our first year anniversary and all, but once we got there... I too felt blessed and thankful for being where we are right now.

I am convinced after seeing all those folks there yesterday that we will prevail and we will find that "unconditional cure"!!!

Keep safe and happy! I am sure we will see you guys at our favorite meeting place sometime soon.

XOXO

Banu Sheehan www.endlesshope.org <banu@endlesshope.org>
Cherry Hill, NJ - Monday, November 3, 2008 1:24 PM CST

Awwwww! Miss G and Rosie are so cute. I haven't had a chance to check in for a few weeks and I didn't have a chance to read all the missed journal entries, but enough to know that all seems to be going well. The race sounded like it was so much fun and if I were Miss G I would have hugged my doctor, too:) You guys are always in my prayers.
Hugs and Blessings,
Val
Carly's Mom
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Monday, November 3, 2008 10:34 AM CST

HEY CAMIOLOS!!!

G and Rosie your costumes were soooooo cute. I am a big fan.:)
I'm sad I had to miss the race but it looked like you guys all had a great time. Good job G!!! you really did crush that hour:) Hope to see you all soon!
Elizabeth <lizapps@gmail.com>
- Monday, November 3, 2008 8:42 AM CST

Made me cry from a vast distance - your strength is amazing!!!! Go GfoRce!!!
Genna you are a marvel - congrats Rosie on the medal.
Diane
- Sunday, November 2, 2008 8:15 PM CST

Hurray for the RACERS!!!! Great job ALL!!!!

I've been meaning to actually call and say hello and all that...it's been a crazy week.

Did Genna and Rosie get anything in the mail from Yakima? My seventh graders have been bugging and bugging me.

Can't wait to see you at Christmas!
Emily
Emily Appert <emilyappert@gmail.com>
The Middle of Nowhere, WA - Sunday, November 2, 2008 4:58 PM CST

I hope you are having fun today.......wish we could be at the Race for Hope with you. Here it has been raining, foggy.....very wet, dreary weather and we've all got colds. And we've been doing homework.....that isn't enlarged.....13 sentences to unscramble and put into a paragraph, seriously....don't get me started! I hope your Sunday is going better than ours!

I was looking at the Halloween pictures again and I can see Rosie's missing tooth through the hole! How cute is that?! Good thing we have this 24 inch screen for Drew....so his mom can see better! :0)

Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, November 2, 2008 3:43 PM CST

I love the pictures - and I'm glad Genna is feeling better. I was amazed to get a letter in the post from you - thank you for writing. Good luck G-foRce - I'll be thinking of you all,

love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Sunday, November 2, 2008 7:51 AM CST

ok- so in a random turn of events my senior year high schoolers decided- wouldn't it be so much fun to dress up like saints for Sunday's youth group meeting? We should have a party for All Saints! I kid you not. honestly, truth is stranger than fiction. So with no coaching from me, and probably a rather poor turn out, we are being saints on Sunday. I am falling back on Gianna Molla, since I have to dress up too, and at least Kate has scrubs I can borrow... Glad to see your pumpkin costume was Saved and the kids looked really cute... ttyl, Christine
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Saturday, November 1, 2008 10:47 PM CDT

Dear, dear Genna,
Thank you for being Sandra again, for honoring your friend in such a way. I am so grateful that you chose to do this -- it means a lot to me. I know that Sandra is smiling at you, as I feel that she sometimes smiles at all of us.

I'm so happy that you are feeling better and having more fun in school, showing everybody the spunk that you are made of. Good luck in the walk tomorrow, I'm sure that you will be able to finish it, with your mom's luscious cookies encouraging you to go the extra mile. I wish I could be there, but Mark is running in the N.Y. Marathon for the CTF team, and we will be looking for him among the 40,000 runners. So, we'll be standing in one place for about 3 hours, trying to find all of the CTF runners.

Let's hope for good weather tomorrow as we make people more aware of neurofibromatosis and brain tumors. You are an incredible young girl, walking so far to raise money. I know that Sandra would have been proud of you.

Have fun and keep smiling!

Team Sandy <knitintune@hotmail.com>
Watchung, NJ USA - Saturday, November 1, 2008 10:30 PM CDT

Awww How cute they all are!! I love G's leggings!! I agree hide all chocolate from MOM! Big HUGS!!
Ori <harley00@nep.net>
KINGSLEY , PA - Saturday, November 1, 2008 6:58 PM CDT

Love the pictures - what a cute face you have Rosie!!!!
Don't eat too much of that candy at the one time now - make sure you hide it from Mum - especially any chocolates.
Hope the run is fun!!! Hows that for poetry
Diane
- Saturday, November 1, 2008 5:25 PM CDT

I love the costume pictures! Cutest kids ever! I wish we were trick-or-treating together!
Have a wonderful weekend!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Friday, October 31, 2008 11:51 PM CDT

Flying by to wish you a HAPPY HALLOWEEN! Praying everyone at your house is happy and healthy. Enjoy your weekend! I love to vist your page and would LOVE to visit you in person, Ya'll are awesome!

Love and Blessings,
Judy, Pete, Christian, David, Rachel and Lisa
Charlotte, NC
- Friday, October 31, 2008 6:58 AM CDT

I have to chuckle - love the way you write - can just picture the 5th Grader and you having the discussion. Thats great that G is chilling out and getting to join in at school. Kids came here last year for Trick or Treat and I wasn't prepared so this year bought some lollies (candy) I got christmas candy canes - take it or leave it. I'll be thinking of you at the Race - bit far for me to come!!! though I'd be great support for G or would that be G for me.
Take care
Love and prayers
Diane <dikerno@hotmail.com>
- Thursday, October 30, 2008 8:42 PM CDT

Please know that you are always in our thoughts and prayers.

God bless you
Debbie/Angel_Wings
- Thursday, October 30, 2008 12:45 AM CDT

UGH it's snowing here! And the kids are having a snow day! I can't wait to see you all in your Halloween costumes! I will make sure to send you pictures of mine. They to are going to go out and beg for candy. Oh well what can you do?
Hugs and Love,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Tuesday, October 28, 2008 11:10 AM CDT

Happy weekend to a busy, busy family! We are enjoying the beautiful weather here in Minnesota ~ you never know what the weather will do here. Tomorrow it could be 70 degrees or snowing (or both!)!

I enjoy being your "Angel", and I pray for you every day!

Ann
Angel_Wings
Ann <ourlittlebear2000@yahoo.com>
Fridley, MN USA - Saturday, October 25, 2008 2:54 PM CDT

Hey Genna! I just wanted to check in and see how you are doing! I know October is coming to the end, and you know what that means.. HALLOWEEN! I hope you have a great costume picked out.. i am sure you and rosie will look great and have tons of fun! I saw your picture from the game on Saturday, i hope you had fun, so glad that we could pull out a win for you to see! Can't wait to see you again!! xo Mallory Tornetta
Mallory Tornetta <malloryt@eden.rutgers.edu>
- Friday, October 24, 2008 7:49 PM CDT

Genna! Thank you so much for your wonderful gift. I am getting it framed for the locker room so we always have you in there! See you soon!
Laura Brand <lbrand@sk.rutgers.edu>
- Friday, October 24, 2008 3:25 PM CDT

Oh and I forgot to tell you my mom took that good picture of me and you and i will definitely have to e-mail it! Miss you tons and see you soon hopefully
Katie Marino <kmarino1@eden.rutgers.edu>
Hillsborough, NJ US - Wednesday, October 22, 2008 1:52 PM CDT

Hey Genna! It's Katie Marino from the lacrosse team! I just wanted to say hi and hope that your doing great..we all really miss you and can't wait to see you again! I hope all your gear has been keeping you warm these past cold days and that all is well. I can't wait to see you again and tell your family i said hi too! Have a great halloween girlie!
Katie Marino <kmarino1@eden.rutgers.edu>
Hillsborough, NJ US - Wednesday, October 22, 2008 1:38 PM CDT

Love the new photo - think G looks like Mum. Rosie is growing up so fast. Glad that G is starting to feel better
Diane
- Tuesday, October 21, 2008 8:23 PM CDT

Poor Genna- This is SO wrong !!! She has had enough, without adding Lymes disease to the list !!! Sorry to be delayed in finding out and responding- I wish these darn old caringbridges had update notices !!!
Anyway, we will hope Genna feels better soon, and please tell her to Take It Easy !!!! Lots of our young friends have had Lymes and it seriously dragged them down for a while !!!!
Take care yourself- Being a Mom doesn't get any easier !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Tuesday, October 21, 2008 1:33 PM CDT

Hey Kristin,

Oh my, poor Genna!! I'm so suprised to to read this... So sorry it's been a while since I've dropped by. Been out of the loop these days.

Praying she's feeling MUCH better now. Keep us posted.

Your friends,

Susan & Jordan
Jordan's site <Susan2956@yahoo.com>
Baton Rouge, LA - Monday, October 20, 2008 7:20 PM CDT

For all you readers out there - Kristin did GREAT with her 5K!!! She was way ahead of a TON of people...don't believe her "I barely made it" lies lies lies!!!! LOL I'm also thinking of it sort of as a metaphor for all you struggling moms who run a bazillion "k" each day as you love and serve your precious kids. Continued prayers...
Aunt Rita Kristin Running Fan <auntrita7@aol.com>
- Sunday, October 19, 2008 10:41 AM CDT

I've been meaning to post. UGH, poor G. I'm so glad you found out what it is and that it's not the usual brand of yikes but geeze. I hope the antibiotics kick it's butt soon so she can get some relief.

Sherry & crew
www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <sherrylee440@aol.com>
Broomall, PA USA - Saturday, October 18, 2008 8:26 PM CDT

So glad to hear you have an answer! And doctors do need to start taking us Moms seriously. Good for you for pushing for the labs. Hope G is feeling 110% soon!
Kelly
SK Canada - Friday, October 17, 2008 7:17 PM CDT

So glad they finally found what it was. Just wish those Dr's would of listened to you sooner. It's not like we enjoy them poking our kids for labs.. It's because we know there is something wrong. Hope G feels good soon. Deer BBQ..hmmm might be tasty..let me know!! :)
Love and Hugs,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Friday, October 17, 2008 4:57 PM CDT

At least 2 people are envious of your laminator...! I just wanted to let you know, I got one a few years back (just a small tabletop one) and it is SO much fun!... all my best to super G and super Rosie and super bro...
Maria, Wm's mom <willjim95@hotmail.com>
Springfield, MA - Friday, October 17, 2008 3:55 PM CDT

Genna, hope you feel better soon, sweetie!!

Kristin - now, this is where you get to go BACK to that doctor and say "Nyah nyah - told you so!!". Just went through the same thing with some of my own health issues.

Good job standing firm! I'm proud of you, super mom!

Hugs from rainy VA!

PS - Barack Obama was here today - that should give you an idea of where we are in the world :-)
Melina <melina_mayo@yahoo.com>
New Castle, VA - Friday, October 17, 2008 3:11 PM CDT

Kristin.....oh my, oh my!!! Lyme?!?!!? At least it's that////oh course, any one other than a BT parent would be 'nuts' about it, but, somehow I think you can manage this...Praying for symptoms to abate, and z-e-r-o complications...loveyou...Deedy
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora) <deidreun@yahoo.com>
Chardon, OH USA - Friday, October 17, 2008 12:45 AM CDT

Dear Kristin,
I'm always so grateful to hear when you have been visited by a "normal" medical" problem. The non-nf population might be concerned by lyme disease, but for us, it's like -"you mean, that's all that it is?" Finally, something that has an immediate cure and an end in sight.
You guys looked so spiffy at Timmy's fundraiser. It is always a relief to my non-athletic side to see your troop rushing into an event, heading straight for the snack table, going for the stuff that you're supposed to have BEFORE of AFTER the physical part of the race. You think just like I do -- let someone else do the stuff inbetween the parentheses, we'll just go for the embellishments.
Hope that the rest of your month is uneventful and that you have a great Halloween, full of the snacks and treats that all of you certainly deserve.
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Friday, October 17, 2008 7:53 AM CDT

Ha! I knew you were right! I'm so glad the mystery is solved and I hope you did call everyone back at the ER and doctor's office and say "I told you so!!!" I know you didn't.....the test results are satisfaction enough , but I so wish you would! (Not that you want her to have Lyme..you know what I mean....mom knows....especially after all she's been through!)
I hope she is feeling better soon, Drew will have to call with serious jokes this weekend!
Take care! We love you guys!
Reca
PS We got a wonderful magnet in the mail that Joey ran to put on the frig, it is too cute!
Reca Thomasson <rmthomasson@cableone.net>
- Friday, October 17, 2008 0:07 AM CDT

Good that the cause is not someting Yikey!!!!!
Had to look up Lyme as not something commonly heard in Australia
Take care
Diane
- Thursday, October 16, 2008 8:11 PM CDT

Happy that you have an answer and a plan. Praying Genna is feeling better. Boy, Lyme's disease. Good that you caught it early. Genna you will be feeling so much better in time for all the holiday activities. Watch out Bambi!! I thought there was a noticeable sign with that, a great big bull's eye around a bite. Rash and itching. YIKES this might be something I didn't want to know. Hope Genna is able to enjoy the cool fall air and help Mom laminate everything that can't get out of the way.
Debbie Grace's MomMom
- Thursday, October 16, 2008 6:48 PM CDT

I hope G's pain goes quickly and I will be praying for good labs.

Sherry-Lee McAuliffe (Who is so jealous of your laminator!!)

www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <sherrylee440@aol.com>
Broomall, PA USA - Thursday, October 16, 2008 9:41 AM CDT

HA K is running!! I'll cheer from my chair... and I got a Dr note not to run!! I know that feeling you have...I got it too! It blows! Glad G is getting better, it takes so long for them to get over a cold. Keep the snot feast at your house please! giggles... Hugs for all
Hugs and Love,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Thursday, October 16, 2008 4:02 AM CDT

Ooohhh, a laminator! Can I come over to play? I can justify almost anything - if you ever need help! Glad to hear G's feeling a little better. We went for Ryan's eye check today - after some good patching time, vision hasn't changed. My heart dropped to my feet.....he really has been a good sport with the patch. We follow up in 2 months and if no improvement then, we will do MRI. That was the first question out of my mouth - should we do it now. We last scanned in August'07 then got pushed out to 18months as the tumor was stable. Here we are at 14 months and left to wonder......I feel your ugh!
Keep running Kristin - I'm duly impressed as I sit on my couch!

Kelly
SK Canada - Wednesday, October 15, 2008 9:36 PM CDT

K -
Hope G is pain free today. And hope you got some much-needed sleep!!! Sounds like a rough time of it! Thinking of you and those girls of yours always.
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Tuesday, October 14, 2008 10:55 AM CDT

Hoping that all is going well and Genna is pain and worry free now.
Love and prayers
Diane
- Tuesday, October 14, 2008 6:52 AM CDT

Hi Gemma,

I'm praying for healthier, pain-free days ahead! I'll check back in a couple days to see how you're feeling.

Your Angel,
Ann
Angel_Wings
Ann
Fridley, MN USA - Monday, October 13, 2008 10:04 PM CDT

Dear Kristin,

Thank you so much for coming to Timmy's Tour de Shore with so much else going on in your life. Your day yesterday was long. It was draining! I don't know how you did it with all the worries about Genna. I feel so bad, but it was so good to see you and get hugs : ))) from your Genna and Rosie (and you of course).

I hope this neck thing just disappears and things settle down soon.

Thank you again Kristin. Your are an amazing person and a fantastic, loving mom!

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Monday, October 13, 2008 8:15 AM CDT

Sorry for the yikes -Hope you were able to get some sleep without those thoughts going round and round. Its not fair!!! We need a cure (to quote someone special)
As always love and prayers
Diane
- Sunday, October 12, 2008 9:49 PM CDT

Sorry G is hurting. I know it freaks us when our kids hurt and nobody has a answer. I know you will find the answer. Thinking of you all and sending you strength. Hugs and Love,Ori
Ori <harley00@nep.net>
Kingsley, PA - Sunday, October 12, 2008 8:14 PM CDT

So glad she is o.k., we were all worried. I would have gone too....just to make sure. So much easier than trying to talk yourself out of all the bad thoughts!
Take care and have a restful weekend!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Saturday, October 11, 2008 8:53 PM CDT

As if you need an excuse - though its not good to have one. Sure it will be all good and that school will be fun and troublefree for Genna
Diane <dikerno@hotmail.com>
- Friday, October 10, 2008 9:31 PM CDT

And I are sending warm, wonderful fall wishes your way! Pryaing Gennais well enough to enjoy the weekend and you all have osme FUN family time!!!

I am asking God to protect your heart and remind you how much HE loves you and your entire family. The strain and worry takes its toll on a daily basis I know. I am also asking God to give you grace and peace!!! You are a VERY important part of our lives and I am so thankful God has let me know you. Heart Hugs and LOADS of prayers coming your way. Praying the peace of God be with you!!!

Love and Blessings,
Judy

Please visit Lisa's site
Charlotte, NC
- Friday, October 10, 2008 7:19 PM CDT

Hi Kristin,

I hope that by the time you read this Genna is up and out and feeling well. Headaches and fevers are just not fair. They mean so much more in the BT world, oh to just give a dose of Tylenol and be done with it. I'm sorry.

It made my heart happy to read some of your recent posts and hear of all the fun things your family has been doing. Stable scans, perfect eyes, special times = Happy days.

I guess I was a little caught up in it all when I read the line about 'I did make up a vat of Marinara' and thought I read '.... a vat of Marijuana'! For a split second I thought 'Way to go Kristin!' - but then the voice of reason and a little re-reading had to spoil the fun.

Here's to a great ride/ walk on Timmy's Tour.
Take care,

Lisa,
Jake's mom

Lisa Field <efield5@yahoo.com>
CA - Friday, October 10, 2008 0:10 AM CDT

Oh, please be updating soon......no shunt problems....no out of the ordinary....just plain old yucky bug....that's getting better NOW. You have neurotic friends too!
We are thinking about you! Take care!
Reca
Reca Thomason <rmthomasson@cableone.net>
- Thursday, October 9, 2008 11:28 PM CDT

Prayers that all is good and G gets back to school
Diane <dikerno@hotmail.com>
- Thursday, October 9, 2008 9:29 PM CDT

Ugh! Enough of this fever already! Feel better, Genna. Hang in there Kristin! Soon enough you'll be running [pun back at you :)] and wishing for an excuse to pause again. We will pray for you down here in warm, sunny, Ike-recovering Texas!
Love
The Brownes <gjbrowne2@yahoo.com>
- Thursday, October 9, 2008 6:08 AM CDT

Genna I hope that you are feeling better. Get rid of that fever. Maybe you will build an awesome immunity with this one bug and duck all the others this school year. Praying that no one else decides they want you to share your virus. Love the photo with the Rutgers team. How many people have one like that? Surely a treasure. Someday Genna we will meet, while both are at CHOP for record keeping purposes only. Documentation of continued good health.
Deb Grace's Mom Mom
- Wednesday, October 8, 2008 9:58 AM CDT

If you run out of stuff to clean and tidy I have a house full that is screaming to be done!!!!!
Love and prayers for you all
Diane
- Wednesday, October 8, 2008 3:56 AM CDT

Hi Genna,
I'm so sorry you are sick. Drew must have been feeling your pain today....he came home with a headache! I think he just overdid it in PE, he came home and slept and was good. We are thinking about you so much. I hope you feel better soon!
Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, October 7, 2008 10:29 PM CDT

Hey G! I am so glad we finally got to meet you and your family! I hope you had an amazing time, you and I both enjoyed the pizza I know!!! Hopefully we will see you soon! Love always, Danielle #15
Danielle Mascera
Verona, NJ - Tuesday, October 7, 2008 2:24 PM CDT

Wow !!1 You Did make it to RU after all !!!! I, Too, am a proud graduate of RU !!! Betcha didn't know that , did you ???
I got my graduate degree there and moved to Ma. right after !!! Been here ever since !!! Long story there for another day !!!!
Anyway, glad you got to meet your sisters, Genna !!!he Friends of Jaclyn Foundation is the best, isn't it ???
and you will be surprised how important you are to your big sisters, Genna !!!!
They will count on You for a Boost of spirit now and again !!!
Take care- Feel all the way better !!!!
love, alice, lexie's mom
alice williams <awilgent@comcast.net>
lakeville, ma. - Tuesday, October 7, 2008 12:12 AM CDT

Hi Genna! We had such a great time with you and your family on Saturday. The girls are thrilled that they finally met you. You are awesome and we really look forward to all the time we will have with our new #1 fan!!
Laura Brand-Sias <lbrand@sk.rutgers.edu>
Piscataway, NJ - Monday, October 6, 2008 10:28 AM CDT

Genna,
It was great to meet you and the rest of your family and have you cheering on the Scarlet Knights this weekend! We can't wait to see you again soon,
Brian
Brian McGurn
- Monday, October 6, 2008 9:48 AM CDT

Hey Genna, it was so great to finally meet you! I am so glad you sang for us! I hope you are ready to sing again next time because I'm going to have more lyrics for God Bless My Underwear! I hope you guys had an awesome time, can't wait to hangout with you again!
Kelly Nangle <knangle@scarletknights.com>
Rutgers University, - Monday, October 6, 2008 9:37 AM CDT

Hi Genna! It was so nice to finally meet you yesterday! I hope you had a great day and you looked great in your new sweatshirt!! You & your family are awesome and i can't wait to see you all again!! :)
-Mallory Tornetta
Mallory Tornetta <malloryt@eden.rutgers.edu>
- Sunday, October 5, 2008 6:44 PM CDT

So glad things going well on many fronts. Great that good things happening for Genna, Rosie and all of you. Hope Andrews thumb has recovered.
Love and prayers
Diane
- Sunday, October 5, 2008 4:48 AM CDT

Hi, you have made me very excited for Sam to meet the University of Michigan's softball team. We can't wait!!! You should come to Camp Sunshine some year so you can meet the Murphy's in person. Think about it!!!
Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean yahoo PBT <Scanmom@hotmail.com>
westland, Michigan - Saturday, October 4, 2008 8:22 PM CDT

Hey! My name is Maggie and I am a member of the Rutger's Women's Lacrosse team. I just wanted to tell you I look forward to meeting you tomorrow and hope you enjoy our games! Till then, stay wonderful!

Maggie Pierce
New Brunswick, NJ - Friday, October 3, 2008 10:44 PM CDT

So sorry Miss G is not feeling well. Sending a special prayer up and lots of good vibes your way. It's been crazy around our house, too. Elise, the newly married had emergency surgery (appendix and a female issue) and Adam was leaving on a business trip this week so we brought her home with us. Carr has had ups and downs with the headaches. We have four different check-ups this month and I am going to talk again about her energy level.
I like the new pic on the home page, but am I the only one that now has your site running off the page? I have to mouse back and forth to read. Have a wonderful time tomorrow, I know how Miss G and the girls have been anxiously waiting to meet each other.
Blessings, Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN - Friday, October 3, 2008 5:01 PM CDT

Oh, Genna- You have Got to get better, because you want to feel Well for your meeting with your sisters !!! You will Love having a team all your own !!!
Lexie loves her sisters more than anything !!!!
Please tell your mom we all say Hi, and we are Really Really Glad you don't have a port anymore, because you would have spent some serious time getting antibiotics by now-
Good luck with your brother's thumb !! Squishy, eh ??? That does Not sound Good !!!
Take care- and let us know how the meeting with the team goes !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, Ma - Friday, October 3, 2008 12:57 AM CDT

Sorry your G is not feeling well. I will pray she is better. It's a boy thing about no Dr's. My D has been limping around for days and refuses to go see a Dr. Gee wonder where he got that from. :) I am trying to squeeze in a thinking of you between the lacrosse team. There is so many of them and I will not budge ahead of them... they have long sticks....eek. Thinking of you always. Give all a hug for me. Off to gnash my teeth at someone.
Hugs and Love,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Friday, October 3, 2008 12:44 AM CDT

Heyyy Genna! Can't wait to meet you Saturday and so excited for you to see our games! See you soon!
~Jen Schmitt
Jennifer Schmitt <jschmitt@rutgers.edu>
- Friday, October 3, 2008 10:11 AM CDT

Hi Genna! We are all SO excited for you to come and hang out with us and watch our games tomorrow!!!
Kathryn Seidman <kathryns@eden.rutgers.edu>
- Friday, October 3, 2008 7:41 AM CDT

GENNA!!! I'm so excited to finally meet you on Saturday! I know you will enjoy watching our lacrosse games! We will be playing hard, especially for you! See you soon!
~Marley
Marley Welsh <marleyw@eden.rutgers.edu>
- Thursday, October 2, 2008 8:07 PM CDT

Hi Genna! I'm so excited that you are coming to our games this weekend! I can't wait to finally meet you! Hope you are having a great week, see you Saturday!
- Rebecca Alley
Rebecca Alley
- Thursday, October 2, 2008 6:01 PM CDT

Hey Genna!!!! I can't wait to finally meet you this Saturday! We will score some goals just for you! See you then! -Mary
Mary Cryan <mcryan@rutgers.edu>
- Thursday, October 2, 2008 4:19 PM CDT

Hey Genna!! It's Kaitlyn Curran again, from the RU lacrosse team. I'm so excited that you are coming to see us play on Saturday. We all can't wait to meet you! -Kaitlyn

Kaitlyn Curran
- Thursday, October 2, 2008 10:17 AM CDT

Genna!!! I think you can tell that our entire team is veryyyy excited for you to come to our games this weekend. Hopefully you will be our good luck charm and you get to see some good lacrosse! You should definitely stay for our tailgate and check out all the good treats too! See you Saturday!
Meghan Flanagan <megflan2@rutgers.edu>
- Wednesday, October 1, 2008 8:54 PM CDT

Genna I'm so happy to hear that you are coming this Saturday to watch us play! I can't wait to finally meet you!! <3 Eileen
Eileen Ghent <ghent@rutgers.edu>
- Wednesday, October 1, 2008 8:10 PM CDT

Genna! Hi again, it's Danielle Mascera from the Rutgers Lax team! We are so excited to have you this weekend for our home tournament! I will pray that it is a very nice day out for you and I hope we can come up with a few wins for you as well! I am so excited to finally meet you!!!
Danielle Mascera
Verona, NJ - Wednesday, October 1, 2008 7:49 PM CDT

Genna! Hey it's katie marino again from the rutgers lacrosse team. We are all excited to see you this weekend at our tournament and hopefully we will play great for you and it will be a nice day! Cant wait to finally meet you!!
From, Katie
Katie Marino <kmarino1@eden.rutgers.edu>
Hillsborough, NJ 0884 - Wednesday, October 1, 2008 6:58 PM CDT

Hi Genna! My name is Sandy, and I am a senior on the Rutgers Women's Lacrosse team. I am soooooo excited to have you at our tournament this weekend! I hope you have a safe trip over, and I can't wait to meet you!
Sandy Abel <sabel@rutgers.edu>
- Wednesday, October 1, 2008 6:39 PM CDT

Hey Genna! My name is Brooke and I'm on the Rutgers lacrosse team. I'm so excited to meet you this weekend and glad you can come see us play :) Hopefully we do well! Have a great rest of the week and we will see you on saturday! :)
Brooke Cantwell <bcantwel@rutgers.edu>
Moorestown, NJ United States - Wednesday, October 1, 2008 5:51 PM CDT

Genna! We are all so excited that you are coming to our games this weekend! Hopefully the weather is nice :) Can't wait to meet you! Hope all is well
Karie McGuire <kmcguir@eden.rutgers.edu>
Monrovia, MD United States - Wednesday, October 1, 2008 5:48 PM CDT

Happy Anniversary!!!!!! Miss you all!
Jen Browne <gjbrowne2@yahoo.com>
tx - Wednesday, October 1, 2008 6:06 AM CDT

SHA HALA!!! Attention all guestbook readers: Kristin M. Camiolo is a real RUNNER!!! I have an eyewitness account from a relative..me! And that was in July!! So I'm sure her speediness has increased, despite her wailing and gnashing of running shoes. Don't let her fake you out. She's is a runner and can really move. She's also darn good at raising funds for NF, caring for her family, and making me laugh. So there!!! ;)
The Running Eyewitness Aunt Rita <auntrita7@aol.com>
Blown off the Road by Kristin, NJ - Monday, September 29, 2008 9:59 PM CDT

Kristin - I'm sorry I haven't written sooner, but I'm really glad I had the chance to sit with you and Dave while Genna was in her scan. I was totally extatic to hear that everything was stable!! NEVER give up that hope! It is so easy to go to that dark place, but you are right, you see your little girls and know that all of this work - is totally worth it and we have no choice but to be strong!!
Meri Dickey <meri_dickey@yahoo.com>
Center Valley, PA - Sunday, September 28, 2008 11:09 AM CDT

Hi Genna I was thinking about you this morning and wanted to come by to say HI. I pray all is going well with you. Please know that you are surrounded with love and prayers.
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Sunday, September 28, 2008 9:57 AM CDT

Stopping by to say HELLO and congrats on all the great news. Sending BIG hugs your way!
Love,
Michelle
Alec's mom
www.caringbridge.org/visit/alecgoldstein
Michelle Goldstein <mich2boys@gmail.com>
Los Angeles, CA - Saturday, September 27, 2008 7:07 PM CDT

Dear Genna,
Thank you for all of the great information on New Jersey. I forgot to tell you some new jokes. Here are a few:

What did the great white shark say when he met the seal?
Pleased to eat you.

What do you call an alligator that is a detective?
An investi-GATOR.

What do panda ghosts say on Halloween?
Bam-BOO

Talk to you soon!
Love,
Andrew
Reca Thomasson <rmthomasson@cableone.net>
- Saturday, September 27, 2008 6:57 PM CDT

Hello Genna!

I'm always happy to see when things are stable! Have a great weekend!

Blessings,
Ann
Angel_Wings
Ann
Fridley, MN us - Saturday, September 27, 2008 11:49 AM CDT

Hi Cam's

K you want a shirt that says "stupid tumors" not a problem. I can do this. I've put a lot worse on t-shirts :)
and now I remember I got to take my G to do the eyeglass thing. frikafraka UGH! I am going to start a thing against flu shots...I got mine and I think I got the flu. This isn't going to be good. Thinking of you, hoping with you and trying real hard to be nice to everyone and not go on a firing spree. I really want too but nobody has really crossed the line yet..just me being moody. Need a prayer for Monday...Tell your G ..I think the big guy listens to her more then me. I am ready to grovel at anyone's feet. I'll beg. Not in a good mood today so hug your kids for me and I'll put myself in my room for being bad.
Hugs,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Friday, September 26, 2008 11:29 AM CDT

I found your link from another Caring Bridge site. My daughter, Riley, has NF1 and optic gliomas on both optic nerves. We will keep your family in our thoughts and prayers.
www.caringbridge.org/visit/rileycook
Andrea Cook <ascjac@sbcglobal.net>
Grain Valley, MO USA - Wednesday, September 24, 2008 8:51 PM CDT

Hey, FamCam!!!

Kristin, you make me smile and I can't thank you enough for that. I don't think you know how much I admire you ... your sense of humor, your spirit for life, and your LOVE for your girls (and your entire family, for that matter!!)

Hope you have a good week. Thanks for all you do.

~Heide
m/o ^Jessica^ (forever 17) & Jake (17)
caringbridge.org/visit/jessicarandall

Heide
Marshall, VA - Wednesday, September 24, 2008 11:02 AM CDT

Hi Cams!
In fifth grade Drew has to study a state. Guess what state Drew chose?! New Jersey! We may be calling on you for wonderful facts about your great state!
Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, September 23, 2008 7:54 PM CDT

OH MY GOD !!! We had no idea how hairy things were getting at your end !!! Thank God everyone is OK, But Too scary !!!! All of our walkers stayed out of hospitals until this morning, when one was diagnosed with a stress fracture- Several are home from work today, in hot tubs and at their masseuses, etc.
Thanks for thinking of us- we needed it !!! and we were thinking of you too but we didn't know how MUCH we should have been thinking of you-
We'll try harder next year !!!
But Dave and Andrew- YOU ROCK !!!!
WE will find a way to CURE this beast !!!!
Take care-
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Monday, September 22, 2008 1:18 PM CDT

Hi, We have never met but I saw your link on the brain tumor walk page. I am walking for my daughter Nikirah who was born with NF1 never had any medical problems until last August when she was diagnosed with a high grade brian tumor.

She went to camp New Friends in Maryland thru www.nfinc.org for 2 years (2007 was her last just weeks before being diagnosed). It made such a difference in her life. You may want to check it out. I hope to meet you at the walk. Have met very few families whose child had nf too. Dr. Belasco was her doctor at CHOP for the tumor and nf. www.girlwithnf1.wordpress.com
Marie G <nirie1@yahoo.com>
Deptford, NJ - Monday, September 22, 2008 10:37 AM CDT

Sorry Andrew - forgot to congratulate you on your great placing!!!! WELL DONE!!!!!! Love your photo
Diane
- Monday, September 22, 2008 0:18 AM CDT

WAY TO GO!! To both Andrew ( who did finish with his time goal ) and to Dave...you amaze me! So glad all is ok sounds like loads of water and a warm bath. Thanks for running! Love the signs the girls made! Sending such love and many Hugs.

Hugs,
Ori
Ori <harley00@nep.net>
Kingsley, PA - Sunday, September 21, 2008 10:34 PM CDT

First the tears came as I felt your anguish (you write so well) but then of course you always make me smile by the finish. Well that was a great ending - Dave wouldn't do the coloured hair but made it unforgettable by the sounds of things.
Diane
- Sunday, September 21, 2008 9:25 PM CDT

AUUUGGGHHHHH!!!!!!!!!!!!!!! Dave in the hospital? Can't you guys go one weekend without SOMEONE in the hospital?? Oh my LORD! Go, David, Go! Wow...what a hero. You poor thing - a day of triumph turned into the same 'ole Philly emotions...fricka fracka!!!!!!! Thank you Lord that he is ok. Yikes. Sigh... See you Wed?
Rita
- Sunday, September 21, 2008 9:15 PM CDT

Oh My Gosh!!!! Thank goodness Dave is o.k. You are definitely our twin family, we can't do anything without a little added excitement either! Thank you so much for running and a huge congrats to Andrew for 2nd place. I would say that staggering, passing out and only a minute difference from last year is beyond impressive! Especially since I would be doing the staggering, passing out part at about hmmmm.....mile 1!
Thank goodness everyone is o.k. and you didn't have to spend all 4 hours at the scary ER.
Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, September 21, 2008 8:45 PM CDT

Still stalking you - go Cams - Race for a Cure!!!!!!!!!!!!
I'll be tucked up in bed but will be thinking of you
Diane
- Sunday, September 21, 2008 4:54 AM CDT

Hey Cam guys!
We will be thinking about you tomorrow! We so appreciate you running for NF! I wish we could be there, we can't wait to see pictures!
Take care!
The Thomassons
Reca Thomasson <rmthomasson@cableone.net>
- Saturday, September 20, 2008 11:15 PM CDT

Sunday lunch for us Aussies so am praying for good sleep so the race is like a walk in the park. Hope the hair got coloured!!!!!!!
Prayers for the racers and prayers for all the people cheering and special prayers for the people searching for that cure with the funds raised.
Diane
- Saturday, September 20, 2008 8:54 PM CDT

Good Morning Genna! Stable scans are great! Kepping you in my thoughts and prayers. Have a great weekend! God Bless you. :o)
Debbie/Angel_Wings <debbien333@aol.com>
- Saturday, September 20, 2008 8:41 AM CDT

I am happy to hear about the scans! Another step toward's Genna's healing on earth!

Blessings to your family,

Ann
Angel_Wings
Ann <ourlittlebear2000@yahoo.com>
Fridley, MN USA - Saturday, September 20, 2008 7:30 AM CDT

Thank God !!! WE LOVE STABLE !!! I wanted you to know I have had Genna on my mind all week, AND will have her name on my T-shirt as I walk the 26 MILES in the Jimmy Fund walk on Sunday !!!! All money raised goes to the Lowgrade Program at Dana Farber, which is YES studying NF lowgrades too !!!!!
All my love- Sorry to be delayed- Been feeling crummy this week, and have that little bit of a walk to look forward to-
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Friday, September 19, 2008 9:49 PM CDT

Hmmm where to find hair color stuff... Walmart has the spray on stuff. Look in Halloween costumes and party stuff. Seems like they would have it in hair care but nope. Hope your knee heals well. Ice it down and then heat for 20 min. I don't think your Dave could handle us both. I think he would hide. Smart man you got! Hugs to you all and I will be thinking of you on Race day, and every day.
Love and Hugs,
Ori
Oh yeah party stores carry stuff to turn your hair colors! Beauty stores forever color.
Ori <harley00@nep.net>
KINGSLEY , PA - Friday, September 19, 2008 11:48 AM CDT

Hi Genna! My name is Michelle and I am on the Rutgers Women's Lacrosse Team. Looks like your trip to Disney was so much fun! Can't wait to meet you and hear about it! See you soon!
Michelle Poole <michipoo@eden.rutgers.edu>
Long Valley, NJ - Friday, September 19, 2008 10:01 AM CDT

was awesome to spend time with you in Person, my friend, and next time we shouldn't go so long that the specials at Starbucks go from springtime flower tea to pumpkin spice latte within 2 visits.
october, please.
I will be cheering for Andrew and Dave while loading Kate's moving truck, I promise :)
ttyl,
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Thursday, September 18, 2008 11:18 PM CDT

Yeah! Stable is great and the spine clear even better. I read Monday's update, but didn't have a chance to reply. Just did the happy dance and some shouting! Sorry about the knee thing and hoping for great weekend weather, not too hot, not too cold, just right.
Blessings, Val
Carly's Mom
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Thursday, September 18, 2008 8:24 PM CDT

Yep I to have those days of throwing out things that shouldn't be. Still wondering where the dumb blue socks went to but I just bought more and said oh well. My son will NOT let me touch his blue socks anymore. He takes them straight to Hubby and says " Don't let Mom touch them." Yep those MRI's are burned in your skull... that's when you need something BIG so you put them in a different slot and just go on. I to am all over the place. Does your G take Neurontin?? May be spelled wrong but it the drug makes you so hungry and will put pounds on. Just so when G sneaks the cheese or butter. It's not her...it's the med's. I know they put me on it for a bit for my neck and I gained a ton. So I dropped it and now back to my normal weight. Tell Dave he's lucky I didn't ask for Green hair. I wish I could be there at race day. But soccer game for my boy tells me where I have to be. But if I was to come MY hair would be a rainbow! Love you guys!
Hugs,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Thursday, September 18, 2008 12:28 AM CDT

ATTENTION PRAYER WARRIORS:

PLEASE JOIN OUR PRAYER VIGIL ON FRIDAY, SEPTEMBER 19TH. 2008 BETWEEN THE HOURS OF 8-9 PM. EST. FOR GENNA AND ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS
THANK YOU FOR JOINING US
MJ/ANGEL_WINGS
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Wednesday, September 17, 2008 2:37 PM CDT

Two of the best words in the BT vocabulary....stable and clear! Rejoicing up North for your good news!
Kelly
SK Canada - Tuesday, September 16, 2008 9:30 PM CDT

I keep coming back to see the beautiful smiling face in the silly balloon hat (can just see Dave wearing it) and to read the wonderful news again and again. Yeah!!!!!!!!!!!!!!!!!!!!!!
checked out the guys pages - boy is Andrew growing - soon be taller than Dad - go Dave and Andrew!!!!
Diane <dikerno@hotmail.com>
- Tuesday, September 16, 2008 8:44 PM CDT

So great to hear you write the work "clear". I have been praying for you all and hoping and reading your postings. So happy for you.
christine <cirrotti@verizon.net>
gillette, NJ - Tuesday, September 16, 2008 8:07 PM CDT

YAAAAAAAAAAAAAAAAAY for stable and clear scans! This fabulous news made my day!
Tatiana R
Denver, CO - Tuesday, September 16, 2008 3:43 PM CDT

Morning Genna and Family wonderful wonderful news, Praising the Lord for stable Brain scans and clear Spinal scans. Please know that I am thinking about you and holding you close in prayer.
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Tuesday, September 16, 2008 9:51 AM CDT

Praise God, STABLE!! I finally stopped stalking at one point yesterday and waited till today, I wish I would of read this great news before bed, but it was still WONDERFUL to start the day with!!

Love and relief from the McAuliffe Household,

Sherry

http://www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <sherrylee440@aol.com>
Broomall, PA USA - Tuesday, September 16, 2008 9:27 AM CDT

Kristin....tears of Joy...what else is there?? Deedy
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora)
Chardon, OH USA - Tuesday, September 16, 2008 7:49 AM CDT

Dear Kristin,
The best words an NF mom can hear -- stable and clear!! Now, on to chocolate, school projects, baseball and homework -- normal parent stuff!
Oh, by the way, remember that little TV NF interview we were in? It is now available on DVD. I'm picking up the evidence after I come home from Chicago, dropping off one of them for you, so we can both have some comic reprieve.
Who knew it would be so hard to count backwards?

Marta

Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ US - Tuesday, September 16, 2008 7:09 AM CDT

Deep breath. Congratulations on your reprieve. Whew x a million.
Rita <auntrita7@aol.com>
- Tuesday, September 16, 2008 6:53 AM CDT

WOO HOO! I was so glad G called, it always sounds so good coming from her. (not that Mom doesn't do a good job too....but you know!) I am so glad you got to have something clear! Thank God for clear! And a "NED on the spine" to go with it!
I hope you can breathe a huge sigh of relief and not have the "MRI blues" tomorrow......I know you are beyond tired.
Take care and another WOOHOO!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Monday, September 15, 2008 9:59 PM CDT

Halleluia!! ( Yes I read your journal but I can hear it again tomorrow :))
I am happy.
Suzanne <suzannegallic@gmail.com>
Warren , NJ - Monday, September 15, 2008 9:44 PM CDT

Dear Kristin,

Such wonderful news! Like another mom said...you've all been through the ringer. I am so glad you got this great news.

A coincidence...last night as I lay in bed, the moon was shining so brightly through the window and on my bed too. I thought EXACTLY what you did about all the angel children (my Timmy) looking down on us. It was so comforting and made me smile.

Sending you love and hugs tonight.

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Monday, September 15, 2008 9:34 PM CDT

The Guardian Angel was working then!!!! Yipee!!! I was so nervous opening the page believing all would be good but oh so jumpy. I am so happy I could cry!!!!!!!!!!!!
Blessings and prayers for all
Diane
- Monday, September 15, 2008 9:07 PM CDT

Woo Hoo - clear!! And stable!

And I MUST ask - as the mother of three boys - who were the wrestlers at the picnic??? They are obsessed with wrestling at the moment (Ethan - Triple H, Gus - Rey Mysterio/John Cena and Levi - Undertaker). I'm so grateful for Kayleigh, but I have to say she is the one child I would peg for becoming a pro wrestler as an adult!!! LOL

Hugs to all,
Melina and fam www.caringbridge.com/va/levi <melina_mayo@yahoo.com>
New Castle, VA - Monday, September 15, 2008 8:47 PM CDT

We're so happy it's stable and clear....You've been through the ringer...time to enjoy life....
Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean yahoo PBT <Scanmom@hotmail.com>
Westland, Michigan - Monday, September 15, 2008 8:45 PM CDT

YEAH!! So grateful that it was clear. Knew it would take 2 bags of chips!! And thanks for the cookies... they were so good. Not crumbs as the package stated DO NOT SQUISH!! Will check in later. HUGS and Love,

Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Monday, September 15, 2008 8:18 PM CDT

How exciting!!!That is the best news! Thank you for such a prompt post. You are still in our prayers. God is so good.
Angie Gubser
- Monday, September 15, 2008 8:03 PM CDT

UGH...stalking is so unlady like but here I am. Waiting to hear it is good. Tell Dave " Don't make me come down there and sit on you while someone colors your hair purple!" I am sure all 115 pounds could hold him down....NOT but I will try. I'll be here until I hear. Holding you in my heart and hoping you have coffee and chocolate.
Hugs and Love,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Monday, September 15, 2008 2:08 PM CDT

oh Kristin...just logged on as I thought the scanning was near..didn't know HOW near...Nora is resting, I'll be praying this afternoon for you..you don't have to go back.....we go forward.....May our Lord carry all of you...much love from another NF mom, D.
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora)
chardon, OH USA - Monday, September 15, 2008 11:55 AM CDT

Must be something in the NJ air. I visited Genna's site last evening, but got interrupted by the phone. Never got back to leave an official Hi, how are ya? We will be in Philly for the Parkway Run & Walk on Sept 28. Have a small team of Wilms Warriors. The latest photos here are wonderful. Lots of smiles, lots of glow. Mom seems to be lost "home alone." This too shall pass. Grace is on an every 6 mos. follow up routine at this point. We will be at CHOP on the 21st of Nov. Her onco doc was on Thursday but back to the Friday routine. Hoping we have a cooler day on Sept 28, it is just too hot to get excited about much the last few days. You are on our minds and in our thoughts and prayers. Our friend, (in photo with Grace) Kathleen, is from Randolph NJ, is that near you? Hope someday to meet you face to face. There have been many such meetings this year and I have found our Caring Bridge family to be wonderful people.
Debbie Grace's MomMom <deecee421@yahoo.com>
- Monday, September 15, 2008 9:22 AM CDT

I have been thinking of you and Emma's "Twin" all weekend...I am praying a few Hail Mary's that all goes well today...I will be waiting patiently for a update tonight...(ok I admitt I won't be too patient.
Amie Broeniman <parrothead5@new.rr.com>
- Monday, September 15, 2008 7:12 AM CDT

I don't have any good words....(they are all bad words for stupid NF, but anyway) We are thinking about you so much and will be with you in spirit. We are together in this and it is going to get better.....because I said so!

I will be stalking you big time tomorrow, so post the GOOD news quick.
We love you all!
Take care and eat much chocolate and doritos!
Love,
Reca and the boys
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, September 14, 2008 10:26 PM CDT

Keeping you close in prayer. Joe's off to get his gall bladder out tomorrow, so I'll be thinking of you as I wait at the hospital tomorrow.
Kelly
SK Canada - Sunday, September 14, 2008 10:16 PM CDT

Monday here so prayers have started - there is a Guardian Angel on the way so protection all over the world.

Diane
- Sunday, September 14, 2008 9:10 PM CDT

Dear Kristin and family,

I'll be thinking of you guys tomorrow, hoping for good and stable news. I love the new pictures you have posted, your delightful girls certainly know how to have fun.

Good luck on the scans, and Genna, have an extra bag of chips on me!
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Sunday, September 14, 2008 8:46 PM CDT

seriously. coffee wed am if you're around.
am praying and praying and will be checking my txt message, but call if you need me!
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Sunday, September 14, 2008 6:49 PM CDT

Kristin,
Praying hard for tomorrow. You know people all over the world are lifting you and yours up in prayer.
Val
Carly's Mom

Val Hiers <vhiers1@yahoo.com>
Peru, IN - Sunday, September 14, 2008 5:51 PM CDT

Dear Kristin,

As with everyone else whose lives you and your family have come to touch.....I am with you in thought, prayer, heart and hope today and tomorrow. Will be anxiously awaiting your update.

Love & Hope, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Sunday, September 14, 2008 4:08 PM CDT

Kristin~thinking of you today. . .Knowing that you're likely feeling an intense angst today. Whispering words of nothing less than stable, words that their concern was not warranted (I'm all about hopeful/wishful thinking in times like these) and that G can scan again in 6 months with Rosebud. . .Just keeping you close, like always. Always keeping you close.

Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa Brock <melissa.brock@blockbuster.com>
TX - Sunday, September 14, 2008 1:01 PM CDT

Stalking and sending Peeps to you. Started sending the " Dave must dye his hair purple for race day" too. Tell him there is spray on hair stuff he can use...unless he REALLY wants for real purple hair that last forever. I will so pay if he colors either way. I am sure there are others that will too. Taking those steps with you and holding you so close.
Hugs,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Sunday, September 14, 2008 12:47 AM CDT

Dropping by to let you know I will be thinking of you tomorrow- sending many prayers.
Angie Gubser
- Sunday, September 14, 2008 11:03 AM CDT

My turn to stalk....I hope you are doing o.k. Things are going to be great and you will go back to 3 months...6 months for the panic attacks... It will be o.k., we are going to beat this, we are going to look back on this stupid war and say we won....I hope it's soon!
Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, September 14, 2008 0:34 AM CDT

YIKES !!! AAAKK !!!! I'm With you, Girl !!!!
And we Will be PRAYing like Mad People for Good news-
Lexie KNOWS, too- She asks and worries and gets sad and accepts- all the loss, All of it- That's just not right, when they're 10, for God's sake-
So NO, You CAN'T Go Back- It's TOO hard !!!!
But.... Once, when I was driving to the Jimmy Fund and hadn't been there in a while, I was driving and thinking "How the $^*(***%^$%# do we DO this ??? Week after Week ????
and I saw these little white feathery things out of the corners of mine own eyes, I tell you, it was Freaky-
and THEN, it Came to me- "You Don't do it, you Silly- We carry You !!!!"
DUH- Like I could have EVER done ANY of it myself !!!- Of Course we're getting carried !!!!
And So will You - No Matter What Monday brings-
WE'll carry you and so will those white feathery looking things !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma - Saturday, September 13, 2008 8:07 PM CDT

It's official...I'm a stalker! Holding your hand and sending a petition around to have Dave color his hair purple for race day. Thinking of you.... A LOT!!
Hugs,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Saturday, September 13, 2008 3:28 PM CDT

Hey there's a gorilla here and he isn't a good house guest. He won't LEAVE! But we at times learn to ignore him, then he makes a huge poo mess and we need to wipe it up. UGH..I know I feel you, I feel your hurt and wish I could take it on. Monday will be fine, 2 bags of doritos are needed and it will be GREAT! I will stalk you till then. Tell G I said 2 bags...giggling...I am such a brat, I always give the kids what they want and not what mom or even Dr wants. To heck with rules I say, lets go play in the mud and dye or hair a festive color. Maybe your Dave can dye his hair purple. I'd pay to see that. Then he has to leave it purple for the first day back to work. See how Ori works!! Give those Girls a huge hug for me. Tell Dave I vote purple hair for race day and if I was closer I'd help you make cake!
HUGS
Ori <harley00@nep.net>
KINGSLEY , PA - Friday, September 12, 2008 11:33 AM CDT

hola.
can coffee happen wed? you don't have to tell me til monday night/ tues... I'll keep the morning open.
Just finished a 12 pg systematic theology paper today and my head is ready to explode. would love to see you & pretend to be normal :)
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Thursday, September 11, 2008 9:19 PM CDT

Good luck Monday!!!! We will be praying, sending extra super-de-duper positive energy & rooting for you to start off a great SCAN week.

Also wishing the boys a HUGE success too!

Miss running into you guys! Maybe next time...

Lots of XOXO. Thinking of you always!
Banu and the Sheehan Gang www.endlesshope.org <banu@endlesshope.org>
Cherry Hill, NJ - Thursday, September 11, 2008 7:58 PM CDT

Hey you!
First, I am so proud of all of you all for all you are doing for awareness and fund raising......because I am really sick of NF already! I am donating to Andrew (sorry Dave), but I am so grateful to both of you for running for us!
And Kristin, I just found a picture of Drew and Matt and I that they took the day he got his port. (I found it last weekend, right before Monday scan). I'm not really sure why they took that picture, but we have a picture.....in a bag with info about his port.....it was in a pile of course. We are so alike it's scary. And Drew....always "knows things", I was just thinking that today. Sometimes it really freaks me out actually, I can be thinking about something and he will start talking about it.

We are thinking about you always and Monday will just be extra power coming your way. It will be all good and then you have a little break for a while....

Take care! We love you all!
Reca and the boys
Reca Thomasson <rmthomasson@cableone.net>
- Wednesday, September 10, 2008 10:30 PM CDT

OK just don't let the elephant sit on your head!!!!We are all here praying
Diane
- Wednesday, September 10, 2008 8:55 PM CDT

Dear Kristin,
I lost Mark too once. Can you imagine LOSING Mark??? (Sandra's brother, for those of you who don't know, is 6'7"!) I ran up and down the street looking for him, checked his room one last time, noticed the pile of stuff on his bed had moved, and then found the poor victim. Yes, finding Andrew certainly deserves forgetting everything for a while, immersing yourself in chocolate cake recipes and having the best dinner possible.
Thanks to all of your kids for stopping by at the "lost boy's" garage sale. He just loves your curly topped gang, said he would do anything for Genna and Rosie, and might just join me at Timmy's fundraiser at the shore and HE'LL stay with the boys, so they don't have to keep on coming back, checking up on me.
I'll be thinking about your family on the 20th. Have a peaceful weekend, and if you ever decide to have a garage sale again, I have STUFF...
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Wednesday, September 10, 2008 4:46 PM CDT

Right here beside you. . .holding hands, banding together. Convinced that there HAS TO BE A CURE. . .SOON. Tears Kristin, SO many tears.

And it's now evidenced that I'm a stalker! We love you guys.

Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa Brock <melissa.brock@blockbuster.com>
TX - Wednesday, September 10, 2008 2:54 PM CDT

Thinking about each of you. . .wishing we were closer in the difficult moments. Never doubt that we're whispering words of good health for the girls. . .We love you!

xoxoxoxo~
Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa Brock <melissa.brock@blockbuster.com>
Texas - Tuesday, September 9, 2008 1:04 PM CDT

Love those glasses Rosie!!!! Both girls look so sweet - could just squeeze them through the computer. Hope all are over the dreaded illnesses and you didn't get washed away - rain and rain happening over there by reports.
Take care
Always in thoughts and prayers
Diane
- Tuesday, September 9, 2008 5:49 AM CDT

Just checking in to say Hi and wish you well in Scanland !!!
and Yes- We need a CURE !!! SOON !!!!
Lexie has the same passion about attendance at school that Genna does- she had been known to say "the worst thing about having cancer is missing school !!!" Go figure-
so On to school it is !!!
Go Genna !!!
take care-
we're thinking about you and yours this week !!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Monday, September 8, 2008 9:02 PM CDT

Hey dreads are cool...sort of!! Gabbie's curls are like springs. I try to flatten them down and pop there back...wondering about gel! Sorry I outed you on the chocolate!! Sending positive energy for scan day. Thinking how I can turn the MRI machine into something that burps and farts instead of banging and teeth rattles things. After all a machine that burps and farts is so much more like able then what it does now. G ( yours ) will be great! They just read the scan wrong, That is all. Holding your hand anyway! And always have 2 camera's. And disposables, and video camera's and all.... My hubby complained that nobody needs 2 of everything..he got growled at and now buys extras...Men learn if you growl real hard.
Send you and your girls hugs...I'd give Andrew one but that is so UNCOOL!! Hug him when he sleeps that is what I do.
Hugs,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Monday, September 8, 2008 1:30 PM CDT

Hi Cams,
I hope Miss Rosie is feeling a lot better and that the germs didn't spread.....that's not a good start for the year. I have been so bad about posting on here lately, I check the site AT LEAST once a day and I must just send messages through the brain waves or something....."I have to tell her this or that".....I just don't actually type it all the time. Maybe I have lost it more than I thought!

I am so excited for the Friends of Jaclyn team for Genna....I am going to talk to Drew about this and see what he thinks. I am just worried Joey will be incredibly jealous. He is such a sports nut and Drew really isn't as much. I think Drew would love cheering a team like this on though. I am going to tell Joey about it ahead of time and try to explain things.... Joey can still play the sports that Drew wants to be playing.

Anyway, we are going to start the "good scan" ball rolling tomorrow. Can the stupid NF and brain tumors just go away already?! FOREVER!

I better quit rambling for now....can you tell it's the night before scan?

Take care! We are thinking about you always!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Monday, September 8, 2008 0:49 AM CDT

Kristin - I finally hunted down Genna's site and found you! We will still be here at CHOP and I would love to meet with you again. Maybe it can help the time go by during her scan. I'm glad both girls are feeling better. Thanks for the many messages :)

Meri
www.caringbridge.org/visit/caitlindickey
Meri Dickey <meri_dickey@yahoo.com>
Center Valley, PA - Sunday, September 7, 2008 11:06 PM CDT

Dear Kristin, Dave, Andrew, Genna & Rosie....

It took Hurricane Hanna for me to finally sit and write to you. Please know that I don't miss one update. I am so in love with those two girls of yours....I'm forever checking in.

Hope Rosie is feeling better, and I am glad that Genna is happy with school (so far) this year. I can't believe she is in 5th grade! Your Genna and Rosie have grown so much during the last few years.

Thank you Dave & Andrew for all the running/fundraising you continue to do for NF. This horrible disease has affected too many people I care so much for.

Thanks for dropping me a note. Yep...first day of school is for some reason always one of the hardest....but I am okay! I am gearing up for Timmy's Tour de Shore and hoping that we can raise awareness and lots of money again this year.

Hope you guys can make it!

With Love, Hope & Prayers,
Susan (Forever Timmy's Mom)
www.tourdeshore.org

SusanPaux@yahoo.com <SusanPaux@yahoo.com>
Middletown, NJ USA - Saturday, September 6, 2008 2:38 PM CDT

I'm glad Miss G was able to go to school. Wow! Fifth grade, another milestone Kristin! I hope Rosie continues to be on the mend. Carly had to go to the doctor today. Sinus infection and nasty ears. Two scripts later and we were out of there. In the meantime, the newly married daughter called and had just been to the doctor who said she also has a sinus infection! It's that time of year. Stocking up on Lysol wipes, tissues, and hot tea. Praying for the upcoming scan day.
Blessings, Val
Carly's Mom
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Friday, September 5, 2008 9:23 PM CDT

Hi all,

Just stopped by to say Hello & wish the boys good luck with the run, wish the kiddies a fun filled school year & the girls a healthy scan!!! We miss you guys and can't wait to see you in Philly for our annual "Race for Hope".

We too have a scan coming up 9/17 Wed at LaCHOP and maybe will run into you.

Lots of XOXO
Banu (Devon's mom) - www.endlesshope.org <banu@endlesshope.org>
Cherry Hill, NJ - Friday, September 5, 2008 8:52 PM CDT

G - you must be a celebrity! I can't keep up with all the postings and notes people leave you! WOW! It's very exciting stuff getting back to school - I hope you have a wonderful school year!
Amy
Hatboro, pa - Friday, September 5, 2008 11:42 AM CDT

Hey Genna!!! My name is Mary, I am a Junior on the Rutgers Lacrosse Team, I am very excited to meet you and get to know you better! See you soon!
Mary
- Thursday, September 4, 2008 7:45 PM CDT

Genna! Hi my name is Karie and I'm on the Rutgers Lacrosse team too! You are always in our prayers and we are all so excited to meet you! :)
Karie McGuire
- Thursday, September 4, 2008 7:44 PM CDT

Hi Genna! My name is Kaja Stamnes, I'm a junior on the Rutgers Lacrosse team. I'm very excited to meet you and have you become a part of our team and family!
Kaja Stamnes <kstamnes@eden.rutgers.edu>
- Thursday, September 4, 2008 7:31 PM CDT

Hi Genna! My name is Rebecca Alley and I'm a freshman on the lacrosse team at Rutgers. I'm really excited to meet you soon! I hope you are having a great day! - Rebecca
Rebecca Alley
Lebanon , NJ 08833 - Thursday, September 4, 2008 4:46 PM CDT

Kristin- I have thought about what to write since your Saturday posting. First things- you are amazing at putting your thoughts into words. Second, I know there are no words to make this battle easier, but please know you have thoughts and prayers coming from all over. I keep you guys close-I also will be sending many prayers for your next fours years to bring you love, laughter and many great memories. Angie
Angie Gubser
TX - Thursday, September 4, 2008 11:38 AM CDT

Genna this is Marley scratch that last message! I am a sophomore haha! But still very excited to get to know you...i know you will love all of us!
Marley Welsh <marleyw@eden.rutgers.edu>
Jarrettsville , MD - Wednesday, September 3, 2008 5:40 PM CDT

Hi GENNA!!! My name is Marley Welsh and I am a freshman in the Rutgers lacrosse team!... I'm very excited to meet you! I know you will be a blast to hang out with ... c ya girl!
Marley Welsh <marleyw@eden.rutgers.edu>
Jarrettsville , MD USA - Wednesday, September 3, 2008 4:44 PM CDT

Hi Genna!! My name is Kaitlyn Curran. I am a freshman on the Rutgers Lacrosse team. I'm so excited to meet you, see you soon!
Kaitlyn Curran <kaitcurr@eden.rutgers.edu>
- Wednesday, September 3, 2008 12:07 AM CDT

Hey Genna! My name is Danielle. I am a freshmen on the lacrosse team at Rutgers. Everyone is really looking forward to meeting you! I hope you had a wonderful Summer. Your pictures looked great! Hope to see you soon.<3
Danielle Macera <dmascera@eden.rutgers.edu>
Verona, NJ USA - Wednesday, September 3, 2008 11:25 AM CDT

Hi Genna My name is Katie Marino and I play lacrosse for Rutgers! I just wanted to introduce myself and let you know I can't wait to meet you! I hope you have a great day and hope to see you soon!! : )
Katie Marino <kmarino1@eden.rutgers.edu>
Hillsborough, NJ 0884 - Wednesday, September 3, 2008 11:12 AM CDT

Hey Genna I am Kathy Parker a senior on the women’s lacrosse team at Rutgers. I can’t tell you how excited I am to have you join our family! Can’t wait to meet you! take care ~ Kathy
Kathy Parker <kathpark@eden.rutgers.edu>
New Brunswick, NJ - Wednesday, September 3, 2008 10:30 AM CDT

Hey Genna! Just wanted to introduce myself, my name is Lindsey and I'm a freshman on the Rutgers lacrosse team. Your pictures from disney looked like you had so much fun! I hope you enjoyed your summer and I can't wait to meet you. Talk to you soon!!
Lindsey Watts <lwatts9@eden.rutgers.edu>
Hillsborough, NJ United States - Wednesday, September 3, 2008 10:05 AM CDT

hey genna! I hope you had a great summer. My name is Mary Moran and I am also on the lacrosse team for Rutgers. We are all so excited to meet you! I hope its soon! =]
Mary Moran <mmoran12@eden.rutgers.edu>
- Wednesday, September 3, 2008 9:39 AM CDT

Busy page Genna with all the girls from the Lacrosse Team introducing themselves. You are gaining lots of special family members. Love the photo of you at camp - boy you are growing up so fast.
Take care
Love and prayers always from Australia
Diane
- Wednesday, September 3, 2008 7:48 AM CDT

Heyy Genna!! My names Jen Schmitt and I'm part of the lacrosse team at Rutgers and just wanted to say hi and introduce myself...I'm so excited for you to be a part of our family and I cannot wait to meet you!! :) <3
Jennifer Schmitt <jschmitt@rutgers.edu>
New Brunswick, Nj US - Tuesday, September 2, 2008 11:07 PM CDT

Hello Friends,
Sitting here at home catching up on some CB postings of people we love. I had to read back a few entries to hear about Miss G's reaction to camp this year. It was worth checking back on. She amazes me, she gets braver all the time. Your most recent journal post once again made me think< "Yes, that is how I feel exactly." The part about learning to drive on the big highways...now I could do it with my eyes closed. The sad thing is, Carr could too. She even know the exit numbers we need. I was at a Pizza Hut for lunch with my sister, sister-in-law, and a friend the other day. The placemats had a game of "What if". Like, if you were stranded on a deserted island what one item would you want or if you found a magical lamp and the genie granted you one wish what would it be? I think I caused a downer on everyone when I was asked the last question. I didn't think twice and said, "For Carly to be healed completely." It brought tears to my eyes just saying it, but it just came out. Even on really good days it is always there and no one really gets it unless they have been or are there. I know it is not the book you planned to write four years ago, but your words are a comfort to me and so many others. You write what we feel because your heart is there, too.
Blessings, Val
Carly's Mom
www.caringbridge.org/visitcarlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN US - Tuesday, September 2, 2008 8:06 PM CDT

Hey Genna.....My name is Emily Penn and we all can't wait to meet you, and for you to become a part of our little family. Talk to you soon!
Emily Penn <empenn@eden.rutgers.edu>
- Tuesday, September 2, 2008 7:11 PM CDT

Hey Genna! My name is Eileen Ghent and I'm so happy you're going to be a part of our family. I can't wait to meet you and learn all about you. See you soon!! :)
Eileen Ghent <ghent@rutgers.edu>
- Tuesday, September 2, 2008 7:10 PM CDT

Hi Genna!
Our team at Rutgers is so excited to meet you! Hopefully your summer was good. See you soooon!
Faith Richards #6 <frich06@eden.rutgers.edu>
- Tuesday, September 2, 2008 7:01 PM CDT

Hi Genna! My name is Mallory Tornetta and i am a senior at Rutgers University and i am also a member of the women's lacrosse team. I can't wait to meet you and am so excited to welcome you into our family! Look forward to seeing you soon!!!
Mallory Tornetta <malloryt@eden.rutgers.edu>
New Brunswick, NJ USA - Tuesday, September 2, 2008 6:57 PM CDT

Hi Genna!
My name is Meghan Flanagan and I'm a junior on the Rutgers women's lacrosse team. I just wanted to say hello and to tell you we all can not wait to meet you! You will be constantly in our thoughts and prayers!
Meghan Flanagan
New Brunswick, NJ USA - Tuesday, September 2, 2008 6:32 PM CDT

Genna!

My name is Laura Brand and I am the Head Women's Lacrosse Coach at Rutgers. We are all so excited to meet you and can't wait to welcome you to our family! I hope all is well and we will meet soon!
Laura Brand
Piscataway, NJ USA - Tuesday, September 2, 2008 3:56 PM CDT

I can't even tell you how happy I am that we broke out of our 'scan twin' thing. As always I felt your words were coming out of my own head. We're almost 4 1/2 years in now. I was a barely 26 year old mom of a 3 year old, 2 year old and 5 month old. Now, my babies are all in school (well, the boys...starting Wednesday) and I feel a million years old. There are only a select few friends my own age that I can actually relate to. These years have been hard...

BUT, (Dr Sun used to say..."there's ALWAYS a but.") we have met so many amazing people. We've yet to meet so many more who are always out there praying, giving, loving...just because there is a need. We have seen the best in people over and over and over.

Love to you all. I hope your weekend was wonderful!

www.HadleyFox.com
Angela Fox <FoxiFamily@yahoo.com>
Portland, OR USA - Tuesday, September 2, 2008 0:09 AM CDT

Kristin, I'm a day late, but you're ALWAYS in our thoughts. Just 21 days ago I sat where you are, 4 years, a little girl who was just barely 2, just turned 6 and started First Grade, and I'm able to HOPE, even in the midst of gripping fear. We LOVE you all, and our prayers for G's upcoming scan are FERVENT.

Keeping you close,
Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Sunday, August 31, 2008 9:41 PM CDT

Holding you guys in our hearts and prayers. The milestones are so mighty. We'll have all the prayer warriors we can muster storming the heavens for the upcoming scan!

Tell Dave and Andrew that we are super impressed with the running! And you too! I keep saying I should start, and then add "maybe tomorrow" every time!

The new photo of Genna is beautiful, it's one of those that you can't help but smile along with.

With love,

Sherry-Lee
http://www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <sherrylee440@aol.com>
Broomall, PA USA - Sunday, August 31, 2008 9:33 PM CDT

G~ you get prettier everyday. Your smile turns my heart to mush! So does your sisters! You and your Fam is always in my thoughts and heart!
K~ 4 years is good! 4 more will be better! I've chased this NF thing ( I will not write bad words here) for 9. NF can't destroy us. We stand together and fight and will always fight. We will never give up... as we are Mom's. And Mom's make everything better. We are the good guys in this fight and good guys always win! At least they do in my story. When you get wobbly let me know and I'll stand in. I've yet to do baseball but I bet I can swing real good. Peace be with you and cyber hugs for K as I know she has a space thing!! giggles!! Love to you all
HUGS,
Ori
Ori <harley00@nep.net>
KINGSLEY , PA - Sunday, August 31, 2008 8:32 PM CDT

hey. I love you very much my friend and as always am praying for and pulling for...
If you need a place to hide, ours is good for that. I'll leave you all alone with the fat cat.
And if you need a person, dark chocolate, coffee and convo, or ANYTHING... I am always here.
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Saturday, August 30, 2008 11:11 PM CDT

Thank you for your wisdom and courage - you teach me so much about life. 4 years ago I didn't understand how it was - 4 years ago I was ignorant and now hope that I am more tolerant and compassionate. Thank you for sharing that NF sucks and you are fighting for a cure!!!!
Love and prayers
Go Dave and Andrew and also you Kristin - running for a cure
Diane
- Saturday, August 30, 2008 4:26 PM CDT

Dear Kristin,

We all think of four, eight, ten years ago. We remember the meal we ate when the doctor called, the frozen moment of silent despair, broken by the inquisitive voice of the child with the tumor, who inquires about the phone call.
Life goes on, the dinner is eaten, the children are bathed and put to bed.
But you, Kristin, you have taken up the fight, definitely more meaningful than the manuscripts that are gathering dust in the garage. You have given a voice to brain tumors/nf. We all prefer the life of ease, this is not the path we choose to walk on, but sometimes I feel it is the only path in which we can make a difference.
We sigh for our children's lost innocence, for what they have to go through, but we also are given the gift of seeing them overcome incredible challenges at a very young age, of being more compassionate towards others, of showing us unbelievable insight into what is important in life.
I thank you for sharing with us the life that you have lead these past four years. You have shared your tears and laughter, allowing us into your world, showing us courage and determination that we didn't know existed. You have sustained us at our time of need.
We will be there for you and your family.
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Saturday, August 30, 2008 12:16 AM CDT

Our four years is September 1st.

Beautiful post, Kristin, as always.

With love,

Melina and Levi www3.caringbridge.org/va/levi

PS - come check out Levi's site for new pictures :-)
Melina <mmbrown@earthlink.net>
New Castle, VA - Saturday, August 30, 2008 11:31 AM CDT

Kristin,
You always say it so well. I am glad I'm not the only one running to the doctor every so often. The worst was right after Drew stopped chemo the first time......I was convinced I was dying and going to leave my children. It was just aches and pains and some extra chemo pounds from being stressed out for 2 years. Thank you for sharing these things so I know I am not alone. I think the hardest part with all of this is that it's never over. People think that you do treatment and it either works or it doesn't. They don't think about the scars left behind, the constant worry about what may be in the future. You worry about being secure because that's when it bites you again.
Thank you for all you do for a cure.....you are amazing. We are going to get rid of this stupid NF and our kids will have kids without a worry!
Take care, we are thinking about you always!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Saturday, August 30, 2008 11:15 AM CDT

hey, all.
for some reason your main page just got ginormous on my screen- is something different, or is that so G can read it?
just checking in and sending love.
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Friday, August 29, 2008 10:26 PM CDT

Hi
Thinking of you all
Diane
- Friday, August 29, 2008 7:03 AM CDT

LOVE the camp pictures! LOVE the smiles! Love the newspaper article!! HATE NF!! Day by day, don't look ahead. Take each day as it comes and enjoy it!
Love you guys!
HUGS
Ori <harley00@nep.net>
KINGSLEY , PA - Thursday, August 28, 2008 1:23 PM CDT

I'm so glad Genna had such a great time at camp!! I know you were proud of her and at the same time probably a little sad that she didn't have the time to write. Your baby is growing up. My baby will be 6 on August 31. I can't believe it!! My other baby will be 10 October 8th. He's been telling me that all year. I'm not ready for double digits!! By the way, I love the pic of Genna on her main page!! She looks soo happy!! It's really a great picture. Lauri
Lauri Fowler <lsfowler@truvista.net>
Rock Hill, SC USA - Wednesday, August 27, 2008 4:57 PM CDT

Hi All,

Glad to hear camp was a blast. I just read the story and what a nice article. We hope we can get in next year... Devon can't wait to hear the stories from Genna.

We miss you guys and will maybe run into you at LaCHOP sometime. We are scheduled for an MRI on 9/17 Wed & See the NO on Tues day 9/23. If we don't run into to you then, we will see you at the Race (or walk for us :) in Philly.

Good luck Dave!
Banu www.endlesshope.org
Cherry Hill, NJ - Tuesday, August 26, 2008 5:13 PM CDT

Genna, Your grandmother told me you read "Little Women" and she was proud of you...so am I!! It sounds like you've been very busy since you left JanDor. I keep you, Rosie and your family in my prayers. Duncan says, "Woof-woof!"
Mrs. Underwood
Haymarket, VA USA - Monday, August 25, 2008 12:30 AM CDT

ok, I HAD to comment, because I got a very strong visual of Genna doing archery. Big smile on my face. Enough said.
But soooo glad she was busy and happy!

sounds like you'll have your hands busy this week between camp & school trying to keep the troops occupied!
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Sunday, August 24, 2008 10:39 PM CDT

Thank you Lord for the !!!!!!!!!!!!!!! in that post!!!
Aunt Rita <auntrita7@aol.com>
- Sunday, August 24, 2008 10:39 PM CDT

Wow !!! What a great camp time was had by all !!!! How cool !!!!
Thanks for checking in-
we are trying to get back to reality- not too successfully, as i have a Month's worth of laundry- It's going to take a while- and all i want to do is read my book !!!!
Running away was SOOOO cool- I may try it again Sometime!!!! We all loved it-
talk soon-
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Sunday, August 24, 2008 8:19 PM CDT

Glad that Genna loved the camp and was so busy she didn't have time to worry!!!! Go Camp!!!!!!!
Enjoy the final weeks of the holidays. Bring on Summer in Oz - been our coldest longest winter in years (not that it isn't beautiful one day perfect the next here in Queensland - thats a little plug for Tourism Australia!!!!)
Diane
Australia, - Sunday, August 24, 2008 3:11 AM CDT

Hi Genna love the new picture you look wonderful!! Please know that I am thinking about you and keeping you in prayer always.
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Saturday, August 23, 2008 8:41 AM CDT

strength and prayers from the borough to you all.
I come away from this entry with too many memories myself, and so I have to send you virtual hugs... my heart is holding on to hope for you all, for miracles- hey ...with realization there have been so many miracles thus far... and with prayers for wisdom for all the wonderful doctors!
Glad the kids are at their respective camps - it's so great for them to get away from the everyday.
love from me.
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Thursday, August 21, 2008 11:14 PM CDT

Checked out the camp shots. It looks an amazing place. Genna will be having a blast.
Diane
- Thursday, August 21, 2008 2:45 PM CDT

I love the new pic. She looks so happy and beautiful!!
Angie Gubser <queenie_adb@yahoo.com>
- Wednesday, August 20, 2008 3:56 PM CDT

WooHoo! I went to the camp pics and there I found three close up shots of Miss G with a huge beautiful smile on her face in each one. She looks as if she is having a great time. I know it is so very hard letting her go, but you are doing the right thing. Rosie and Genna are always in my prayers (you are in my mommy prayers) and I know she will have awesome stories to tell again this year when she gets home. I can't wait!
Blessings, Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers
Peru, IN - Wednesday, August 20, 2008 8:51 AM CDT

You are on my heart. I just wanted to say Hello! (and send you a smile :o)

Blessings,
Judy and Lisa
NC
- Tuesday, August 19, 2008 10:52 PM CDT

Dear Kristin,
If there is one person that I know who will give NF the fight it deserves, it is YOU. You have become a true warrior, just like someone else we both know. There is no challenge that you can't overcome -- you have True Grit, just like your brother, John. So hang in there, Kristin, we are all with you. Put the scans on the back burner for a while and enjoy the rest of the beautiful summer.

You and your girls looked absolutely adorable in your yetifunk shirts. I'm sure the picture will help John get over his aches and pains. Congratulations to him on his enormous accomplishment!!
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Tuesday, August 19, 2008 10:02 PM CDT

Bugger!!! I have no other words that I can put on here !!!!
Diane
- Tuesday, August 19, 2008 9:31 PM CDT

We love you. . .there aren't really any other words to make things seemingly better. We love you, and we're here.

xoxoxo~
Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa Brock <melissa.brock@blockbuster.com>
Texas - Tuesday, August 19, 2008 12:30 AM CDT

Kristin,
As always you are ALL in our prayers. Dave, you, Genna, Rosie and Andrew. I hope Genna has a great week at camp. I am sure she will!!!
I had to laugh at the comment about Andrew. I made Shawny promise me. Look me in the eye and promise me that if he thought he had a fever he would go to the nurse. Ahh they are very much alike those two!!!!!
Peace

Beth
- Tuesday, August 19, 2008 11:34 AM CDT

I just had to pop in and let you know that I am continuing to pray so very hard, even on days you don't hear from me!

I have spent some time today catching up on things I have missed and re-reading things I have forgotten.

Have a BEAUTIFUL time at camp Princess Genna!

Blessings,
Judy and Lisa
Charlotte, NC
- Sunday, August 17, 2008 8:16 PM CDT

Prayers going out to the family! Have a great week.

Ann
Angel Wings
Ann
Fridley, MN USA - Sunday, August 17, 2008 7:45 PM CDT

You girls all look so cute! I love the picture and the shirts! Tell G to have a wonderful time at camp and to call and tell Andrew all about it when she gets back. I was going to have him call today, but it wasn't his best day. Chemo wasn't very easy on him this dose. He seems better tonight so that's good. We are on the quick countdown to school starting.....time for my panic attack!
Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Saturday, August 16, 2008 10:29 PM CDT

Love the photos of the three Cam girls - all adorable!!!!
Checked out the mowhawk - thats some haircut. The race sounds amazing - 30 hours!!!!!
Camp will be awesome.
Diane
Australia, - Saturday, August 16, 2008 5:40 PM CDT

G is amazing and does have a heart of gold though not surprising with such great parents. Hope camp is great for the kids.
Take care - love and prayers as always
Diane <dikerno@hotmail.com>
- Friday, August 15, 2008 6:07 PM CDT

Hi Cam's,
I am so sorry for not adding a note sooner...I read and lurk but at times like these..I lose my words that can be read by kids! My prayers are with you and I'm sending as much positve energy that I can. I so Love your brother for what he's doing! He looks great in a Mohawk!! Give the girls hugs for me. Someday soon we will tumor stomp!
Love and Hugs,
Ori
Ori and Gabbie <harley00@nep.net>
KINGSLEY , PA - Friday, August 15, 2008 5:37 PM CDT

I'm so glad that all went well today! One little sigh of relief. We are thinking about you always, the boys loved the pictures of Uncle John.....I still can't even imagine 100 miles! My trekking around the neighborhood with Freckles seems like a walk across the room compared to that!
Take care!
Reca and the boys!
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, August 14, 2008 11:58 PM CDT

I emailed you several months ago when Laurin was going to begin radiation. (Laurin also has NF1). I wanted to check and see how Genna's doing. I am glad that Rosie's scan is stable but sorry to hear she also has a tumor. My thoughts and prayers are with Genna, Rosie, and your family.

www.caringbridge.org/visit/laurinfowler
Lauri Fowler <lsfowler@truvista.net>
- Thursday, August 14, 2008 12:45 AM CDT

ATTENTION PRAYER WARRIORS:

PLEASE JOIN OUR PRAYER VIGIL TUESDAY AUGUST 19TH. 2008 BETWEEN THE HOURS
OF 8-9 PM. EST. FOR GENNA AND ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST
AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS

THANK YOU FOR JOINING US –

AUSTIN/ANGEL_WINGS

Austin Wilson <wilhope@nb.sympatico.ca>
Moncton, NB Canada - Wednesday, August 13, 2008 8:24 PM CDT

Came across your c/b page....we are also a CHOP family...My daughter Jeaneane was diagnosed January of this year with a brain tumor - she is a patient of Dr. Belasco....
Our prayers and positive thoughts for your family...
Maria m/o Jeaneane
www.caringbridge.org/visit/jeaneanepavlicka
Maria Pavlicka <mepav40@yahoo.com>
Pocono Lake, pa - Wednesday, August 13, 2008 7:42 PM CDT

ATTENTION PRAYER WARRIORS:
PLEASE JOIN OUR PRAYER VIGIL TUESDAY AUGUST 19TH. 2008 BETWEEN THE HOURS
OF 8-9 PM. EST. FOR ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST
AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS
THANK YOU FOR JOINING US –Kim /Angel_Wings

Kim <miller.k1971@yahoo.com>
Lecompte, La USA - Wednesday, August 13, 2008 12:11 AM CDT

Hang in there K. . .we're all pulling for you guys! Uniform shopping yet?? SOOOO much fun!! :) YIKES. Katsie HATES the bermuda shorts I ordered her, so I tried to return them today, only you have to have some special receipt to do so in the store. . .so I've now printed the receipt and will return them. AND hope for something that is acceptable in her opinion. Uuuugghhhh. . .

xoxoxo~
Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa Brock <melissa.brock@blockbuster.com>
Texas - Monday, August 11, 2008 3:52 PM CDT

Hang in there, girl. Thinking of you and the girls always - fingers crossed for good appointments and a fun time at camp for G.
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Monday, August 11, 2008 8:07 AM CDT

hey-thinking of you all.
there is such a thing as too much information - sometimes you just have to put down the newspaper to get through the day...
believe me, the bombings in Georgia happened 45 miles and one week away from where Gio was staying for the past Month - so imminent danger became very real watching CNN this weekend...
but there is hope, and there is the joy of Now - the joy of the beach and the lake and the Muppets :)
hang in there, my friend.
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Sunday, August 10, 2008 9:10 PM CDT

Hi Genna!
Drew just got back from camp today and he had your letter waiting for him! He loved it! He got a magazine with some new jokes for you....I'll let him share them with you later. He was a little out of it when he got home, camp wears him out!
Take care, we will talk to you soon!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Saturday, August 9, 2008 10:01 PM CDT

Checked out the Jaclyn site - its amazing and heart wrenching - sure looks like a great thing - Genna would be over the moon - hope the rock moving is working on the mood - smash a few for me!!!!!!!!
Diane
- Saturday, August 9, 2008 5:44 PM CDT

Hi Genna I hope things are calming down a bit and your window gets fixed soon. Please know that I am thinking about you and holding you close in prayer.
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Friday, August 8, 2008 12:41 AM CDT

Hey there Kristin and FamCam!

I can't tell you how I wish I could reach through this monitor and give you a huge hug. I'm sitting here listening to Regina Spektor (Jessica's fave) ... Chemo Limo ... "this SH*% is making me tired, it's making me tired, it's making me tired." I think you could use a visit from crispy crispy Benjamin Franklin -- to babysit your kids, or maybe even fix your WINDOW!!!!

Wow, that's an incredibly weird paragraph up there, huh? Sorry, I'm in one of those moods and if you haven't heard Regina Spektor then it's going to sound even WEIRDer! :)

I sure hope Happy Gilmore's parents come around and help out a bit more with that window. That's some crazy stuff there!!!!

You are ALWAYS in my heart and prayers. I so enjoy **reading** you, and I appreciate that you share so much with us. Genna and Rosie are heroes, indeed.

Wishing you a peaceful weekend.

~Heide
m/o ^Jessica^ (forever 17) - & Jake (17)
caringbridge.org/visit/jessicarandall
TEAM UNITE! Help Conquer Childhood Cancer!
Heide
Marshall, VA - Thursday, August 7, 2008 10:02 AM CDT

Hi Kristin - I was praying prayers of peace for all of you on scan day and will keep it up. When I get in the car with the kids each day, we pray for Genna. God bless you.
Cristin Luea <ctewey@hotmail.com>
- Monday, August 4, 2008 10:06 PM CDT

Sorry that you are suffering - not much else i can say but thoughts and prayers are always going out for you.
Diane
- Sunday, August 3, 2008 9:39 PM CDT

Kristin and Fam,
Just wanted to drop a note to say hi and that you guys are in my prayers. And I am so sorry for the loss of Fr. Casey. Hang in there and know alot of people are sending good wishes your way.
Tatiana R.
CO - Sunday, August 3, 2008 4:17 PM CDT

Dear Kristin,

Love the new picture of the girls! Rosie is changing so much...that red hair. She looks so much like her momma now!

I have been feeling quite angry with brain tumors too lately. As a mom of an angel for over two years now...I prayed and hoped that treatments would improve...that we would hear from someone "I got the answer". It makes me sick watching all the pain your family, and other wonderful families continue to go through. Oh I'm sorry for being so dismal..I am in the same mood as you.

I have faith in you and Dave. You are the best parents to Andrew, Genna and Rosie. You will keep attacking and someday conquer the beast within!

By the way, I updated Timmy's site...

With Love & Hope Always, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Sunday, August 3, 2008 12:32 AM CDT

Hi Cams!
Those girls look adorable even in hospital gowns! :0)
I so hear you Kristin.....I am pretty sick and tired of NF to say the least. You always say things so well, like you are taking my thoughts and spitting them out much better than I could! :0) (I love the squishing the tumors part.....I was thinking about that when Freckles and I were out on our walk today....I wish it would work.)
I am sorry that you weren't able to take the job, I think full time would have really pushed you over the edge. You are far from useless though. It just means that you are going to be able to have some Kristin time for a change.....you have writing, NF fund raising.....somehow I think you are going to fill the time up with lots of meaningful things. :0) I, meanwhile, am totally jealous! I will have some Fridays off, when we're not in Spokane, we could do lunch on the phone!
O.k., I'm getting a little beyond guestbook entry here. I just wanted to say "ditto" on your post today and you are wonderful!
Take care, we are thinking about you always!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
Lewiston, - Saturday, August 2, 2008 11:12 PM CDT

Cams,

We continue to pray for all of you. Pls let us know if we can do anything for you.
Carl & Therese Moccia <carlp1211@aol.com>
- Saturday, August 2, 2008 7:24 PM CDT

Please know my heart goes out to you guys- I cannot imagine what you are going through- but I really hurt for you. Sending many prayers and hugs!! Angie
Angie Gubser <queenie_adb@yahoo.com>
Wheelock, TX - Saturday, August 2, 2008 4:12 PM CDT

I hate NF too. I REALLY hate that "shade" and "shadow" of disaster and dread that covers everything. But let it go ahead and cover. Let it do its worst. It's only a shadow. It has no real power except to block the sun. The sun is still shining. "Shade" and "shadow" can't make the sun stop shining. It makes our life harder but it can't stop the sun.

That being said, thanks for You Know What. For the rest of the week I'll have to run my You Know What Body Part off or collapse trying. Maybe the mountains of Utah and Colorado will beckon me to their highest peaks and the holy spirit will drag my You Know What Body Part up there! Yeah, right!!! (knee slapping mirth)

This is a hug from online. No personal space issues here.
Rita <auntrita7@comcast.net>
- Saturday, August 2, 2008 1:55 PM CDT

Dear Kristin,

You always make me laugh -- your street should have a sign saying, "Caution, flying golf clubs!" And of course, it HAD to hit your window! Always look at the bright side - it wasn't raining THEN.

Enjoy the rest of the summer with your kids -- who knows what else they'll surprise you with!

Genna, thanks for your lovely postcard! The lake looks so beautiful and COLD! Tell me when you will be having your garage sale and I'll stop by. By the way, Stirling Lake is having a Make a Wish Foundation Flee Market this weekend, just in case you guys are interested. The exact time is posted at the lake, together with phone numbers.
Maybe you could get rid of some of your old toys.

Talk to you soon.
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Thursday, July 31, 2008 12:49 AM CDT

Dear Kristin,

Just getting back in town...

WOW...O.K. we've got 6-8 weeks to be in prayer, on guard and ready to believe for a GOOD REPORT.

Meanwhile, eat lots of chocolate, and enjoy those beautiful girls of yours.

Enjoyed your new pictures, looks like everyone had lots of fun.

I'm here, praying you through.

Susan
Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Tuesday, July 29, 2008 8:11 PM CDT

Yes, I've been waiting to hear of the '?good?' news....We'll take it, I am SO praying for you...much love, and a little chocolate and coffee....Deedy
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora)
Chardon, OH USA - Tuesday, July 29, 2008 7:15 PM CDT

Kristin,
Stable is great! Very happy for Rosie. Miss G is never easy, you know that:) You have so many mighty prayer warriors all around this big globe praying hard for all of you. Genna is such a tough cookie leaving her mark on all who know her.
We are 4 days away from the big wedding! Two beautiful daughters walking down the aisle. One the bride and the other a bridesmaid whom we thought two years ago might not be with us to celebrate the big event. God is good and he is watching over Genna and Rosie, too.
Blessings, Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers
Peru, IN - Tuesday, July 29, 2008 2:23 PM CDT

I'm so sorry you have to scan again in 6-8 weeks. It sucks bad, I know. It's like having Pre-MRI Syndrome for 2-3 months straight. Ugh and Blah!

We will be praying, we always are!

Love ya,

Sherry-Lee
www.caringbridge.org/visit/charlottemcauliffe

p.s. The new pics are great!

p.p.s. I really need to send you pics of the girls in their Yeti gear.
Sherry-Lee McAuliffe <sherrylee440@aol.com>
Broomall, PA USA - Tuesday, July 29, 2008 2:23 PM CDT

Just thinking about you so much. I hope you are doing o.k. I just do not have any good words, just know we are here and we are thinking about you always!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, July 29, 2008 1:43 PM CDT

Today: bright, sunny, stable. Enjoy today. Just think of the huge cut you'll get at my next bead show. And think about my birthday. Yes, that's it!! Focus on ME!!! LOL I love you. Fricka fracka!!!!!
Rita <auntrita7@aol.com>
- Tuesday, July 29, 2008 8:24 AM CDT

Oh Kristin. . .laying in the bed with Katsie. . .insomniacs unite! They called us after we got back to the hotel today and asked if we could arrive at 7:15 in the morning, rather than our original 10:15 arrival time. I'm tired already and tomorrow isn't even here yet. Tried to peek at her CT and the x-rays today, but I'll wait for the official word before I panic. . .

Thinking NOTHING but positive thoughts for G. And so happy to hear that Rosie is stable. 6-8 weeks. . .not even long enough to accomplish some monumental project. Uuuuggghhh, yes, we NEED a cure. Yesterday would have been nice.

xoxoxo~
Melissa & crew
www.caringbridge.org/tx/katsierane
Melissa, who is gearing up for day 2 of scans. . . <melissa.brock@blockbuster.com>
TX - Monday, July 28, 2008 11:39 PM CDT

The good the bad and the ugly It seems - NF sucks - we need a cure
Diane
- Monday, July 28, 2008 9:59 PM CDT

Dear Kristin,

I am happy to hear the "stable" word but concerned because you are. Genna has been through so much. She is such a good girl! Glad Rosie does everything she is suppose to do. How funny about the astronauts! Just keep putting one foot in front of the other like you always do Kristin. Always...always...always...in my thoughts and prayers.

The new pictures are great. Your children are getting so big! Love the picture of Rosie in flight over the lake.

Hugs to all of you. Please tell the girls I said hello.

With Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Monday, July 28, 2008 9:12 PM CDT

Hooray for stable!!! The new pictures are wonderful. I can't wait to see you when I visit in a week or two. We all prayed all day...well, I've been for a few. I've been really pulling for Andrew (you know, it's the healthy sibling thing) SO tell him Mrs. Browne's prayers must have helped him in that championship :) !! See you soon!
Jen Browne <gjbrowne2@yahoo.com>
tx - Monday, July 28, 2008 8:57 PM CDT

Hi Kristin,

I did not hear from you on Monday night soooo... I just got the courage to take a look tonight. GOD! I just want you to know that you are not alone... we are here for you in good times and in bad times (that sounds like we are getting married... I guess we are sharing a BT life together as goofy as that sounds). Anyway, you guys are constantly in our thoughts and we pray for G. and R. every night and I try to add you, Dave and Andrew too... but Devon always sais "mom they don't have a BT?". My answer is "they are suffering too honey and sometimes more believe me"... and she just nods in understanding.

This too we shall overcome! We love you guys!!!
Banu <banu@endlesshope.org>
Cherry Hill, NJ - Monday, July 28, 2008 8:39 PM CDT

Thanks for the quick update. I am glad to hear STABLE. We will keep Genna and your family in our prayers.
Angie Gubser
TX - Monday, July 28, 2008 7:14 PM CDT

Hi,
I'm sorry it's 6-8 weeks away.....not enough time to get over PMS and you're starting all over again. It scares me that Dr. B said that and I've never met her. I hope she's just being extra careful.......
I'm glad Rosie is all good. G needs a break though, it's not fair. Anyway, I'm sorry it's not all happiness.....stupid NF! Please call if you just need to talk, I'm always here.
Take care,
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Monday, July 28, 2008 7:12 PM CDT

Just checking........time difference thing isn't working for me today......stressing for you. Hopefully you are on your way home.....tired, but happy with the results!
Take care!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Monday, July 28, 2008 4:44 PM CDT

Just stopping by to share our good thoughts for you. Good luck today.

And, a whooping belated happy birthday to G!
Doug S <dsetzer@27seconds.com>
Columbia, MD USA - Monday, July 28, 2008 3:53 PM CDT

We are thinking about you so so so much! I was going to email, but I didn't think I would be helpful......I've been a little stressed about Drew's MRI! I was afraid I would stress you out even more! We will be waiting for the WOO HOO stable MRI update from you.....because I know it will be!
Take care!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Monday, July 28, 2008 10:34 AM CDT

Thinking of you today. Will be watching for an update - sending you strength to keep the yikes to a minimum.
Amanda Holman <aholman515@gmail.com>
aholman515@gmail.com, Mi USA - Monday, July 28, 2008 7:34 AM CDT

Dear Kristin,
Sending positive thoughts your way. The pictures of your Camiolo crew are great, capturing everything about you and your family -- we can almost SEE Genna's Wall of Sound, Rosie's gleeful chatter, and Andrew's more mature presence.

Thanks for including us in your honest portrayal of family life in the presence of NF. We must find a cure!
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Sunday, July 27, 2008 11:37 AM CDT

btw. praying for Monday.
C
christine <mithril1971@gmail.com>
HB, NJ USA - Sunday, July 27, 2008 1:28 AM CDT

Hey Cam's! We're at our hotel...plan on hitting the beach tomorrow. Can Monday get here any quicker? What time will you guys be in MRI? She's got CT and some chest x-rays on Monday, then MRI and clinic on Tuesday. . .I trust you've got G's doritos ready!! ;) We just always ask for Zofran, no vomit works so much better for me. The hospital smell alone is enough.

Keep breathing, and eating chocolate!! :)

XOXOXO~
Melissa & Katsie Rane
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Saturday, July 26, 2008 6:44 PM CDT

I LOVE the pictures! Especially Rosie flying through the air! I am glad G had a great birthday.....I hope that doesn't mean that mom is stressing even more. I will have to email you. :0) I'm sort of in that mode right now....you know what I mean! :0)
Take care, we are thinking about you always. The boys had so much fun talking to the girls yesterday. WE had to listen to the card 3 times because they loved it so much. Drew said, "THAT'S THE ONE! We have to send her that one!"

Take care....good MRI thoughts are coming your way!
Love,
The Thomassons
Reca Thomasson <rmthomasson@cableone.net>
- Friday, July 25, 2008 11:00 PM CDT

Happy Birthday Genna! I can hardly believe you're already 10!
I know I'm sending this message late, but I spent All Day - actually a 36 hour day - on your birthday flying home from Sydney, Australia to NJ.
I am really glad to be home, but Australia was awesome! I got really really close to the Pope. And I also got to pet a koala bear and a kangaroo while I was there. The best part was that I got to pray and have Mass with over 400,000 other young Catholic people from all over the world - it was great!
Have an amazing weekend and maybe I'll see ya soon.
love, Aunt Christine
Aunt Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Friday, July 25, 2008 9:20 PM CDT

Happy Birthday, Genna (plus a few extra days)!! We hope you had a great one!!
Tara, Lon, Preston & Ethan
MI - Friday, July 25, 2008 8:56 PM CDT

Happy Birthday Genna. Congrats on the double digits girl! Thinking wonderful stable thoughts here, hoping for the best news.
Kelley Schmidt <kschmidt71@verizon.net>
Feasterville, PA USA - Thursday, July 24, 2008 8:22 PM CDT

Hey, Genna. HAPPY, HAPPY BIRTHDAY!!!! I hope today's a great day for you and your family. Now you're in double digits - that's awesome. Have a wonderful time. You're in my prayers.

Your friend,
Nicholas G.
Nicholas G. <ngillett@eden.rutgers.edu>
North Brunswick, NJ - Thursday, July 24, 2008 7:16 PM CDT

HHHHAAAAPPPPYYYY BIRTHDAY Genna!!!!!!

Shawna/Angel_Wings

Shawna Singleton <mommysms@hotmail.com>
Hantsport, NS Canada - Thursday, July 24, 2008 6:35 PM CDT

Happy Happy Birthday Sweet Genna!
We love you!
Have a wonderful day!
Love,
Reca and the boys
PS tell mom to check her email.....we sent you a little something!
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, July 24, 2008 12:05 AM CDT

A decade Kristin. . .an entire decade. . .HUGE!! We love you guys from hot and steamy hurricane wind and rain ravaged Texas to NJ. . .HAPPY BIRTHDAY GENNA!! :)

xoxoxo~
Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Thursday, July 24, 2008 10:45 AM CDT

Today is YOUR BIRTHDAY! Have a wonderful day!

Faye/Angel_Wings
Lake, MS US - Thursday, July 24, 2008 10:05 AM CDT

Happy Birthday! I hope you have a wonderful day with lots of fun. I will be thinking of you guys on Monday- we will pray for STABLE!!!
Angie Gubser
- Thursday, July 24, 2008 9:52 AM CDT

Happy, happy birthday Genna, dear;
May happy days come to you all year.
If I had one wish, then it would be
A happy 10th birthday to YOU from me!

Happy, special birthday!!!!!!!!

Polly @ Angel_Wings Prayer Warriors
- Thursday, July 24, 2008 9:50 AM CDT

Happy Birthday Genna, and Happy Belated Birthday Andrew! Genna, you share a birthday with my Mom, and she is a great lady, so it must be true that awesome people were born on July 24th! Have a great day, however you spend it!

Kelly and Ryan
SK Canada - Thursday, July 24, 2008 8:20 AM CDT

HAPPY BIRTHDAY GENNA !! I hope your day is filled with love and surprises. Hugs birthday girl !!
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Thursday, July 24, 2008 7:39 AM CDT

Dear, dear, dear Genna,

Happy Birthday!! Thanks so much for your letter -- I can't believe that you are already 10 years old! I hope that you have a beautiful "Sandra like" party, with lots of FUN, games and delicious cake. You ARE one special girl, and I will always remember how you made Sandra laugh with your jokes and your laughter.
Have a wonderful "special day"!

Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ US - Thursday, July 24, 2008 7:12 AM CDT

HAPPY BIRTHDAY!!!
Marianne/Angel_Wings <mjackson@wwhgd.com>
Roswell, GA USA - Thursday, July 24, 2008 7:10 AM CDT

Good morning, Cams!!!! Hope your week has gone well so far!!!!! Had to stop in and say ...

''''''''''

HAPPY

BIRTHDAY

GENNA!!!

''''''''''

DOUBLE DIGITS!!!!!!!!!!!!!!!!!!!!!!!! Sooooo cool!!!!

Have a blast on the Cruise!!!!

~Heide
m/o ^Jessica^ (forever 17) - & Jake (17)
caringbridge.org/visit/jessicarandall
TEAM UNITE! Help Conquer Childhood Cancer!
Heide
Marshall, VA USA - Thursday, July 24, 2008 6:23 AM CDT

More cakes and candles - Happy Birthday Genna - well its your birthday here. Hope the fun stuff is helping to keep the yikes away - even for a little bit
Diane
Australia, - Wednesday, July 23, 2008 9:33 PM CDT

Barely breathing here too. . .Opened my inbox to another 7 day appointment reminder. YIKES. . .AND yes, there's a stinkin hurricane headed to the coast. We'll see what happens. Imagining we'll be swimming at the hotel and not the beach. Bleck. . .

xoxoxoxo~
Melissa & Crew
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Wednesday, July 23, 2008 9:15 AM CDT

Will be thinking of you on Scan Day - that's never a fun day in our house either... Hoping the yikes thoughts are kept at bay - at least for the most part - and the fun stuff takes the forefront!!!!
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Tuesday, July 22, 2008 9:18 AM CDT

Yumm the thought of the chessecake made my mouth water.
13 candles for the boy - I know what you mean you don't feel like you are getting older but the candles on the kids cakes pull you up quickly.
Hope the day was amazing and the yikes stay in the background - though guess they keep coming up to the front!!!
Diane
- Monday, July 21, 2008 5:43 AM CDT

Hi Cams!
It must be a caring bridge thing....but I tried to post last night to you and lost it too. It was long and it was late so I decided to try again today!

Now to remember what I said!!!

I am so glad you had so much fun at the lake, you so deserve a break like that. It doesn't mean that something is looming, it just means you are making one more step away from bt junk! Plus we are scanning near the same time, so it will just be a twin power thing and all good luck! I am totally impressed with Rosie and the dead fish, she will be so grossed out someday!

I am so proud of you and Dave and John and Andrew with all of your running. I am trying to get motivated across the miles.....I think I need you to live closer! My boys could not believe how far John was running. They were worried about him getting a drink of water and being able to go to the bathroom! :0)

I so understand the losing air feeling.....or that things are closing in.....or the thoughts won't go away. I so could not sleep at the lake. It is relaxing, but I also have a little bit too much time on my hands!

I think that is my book for today! We missed you guys so much and are so glad you are back.... we got the post cards from the girls when we got home from the clinic the night before we left for the lake. It was perfect!

A huge Happy Birthday to Andrew!!!! A teenager, WOW! That is just a scary thing!

Take care!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, July 20, 2008 10:30 PM CDT

Hi there strangers,

Long time no talk. It looks like we may have been on vacation at the same time but it sure sounds like you guys had a lot more fun being out two weeks on the lake. Glad to hear you had a great time and hopefully relaxed.

Why don't you all stop by next week after scan, if you're up to it, for a little swim or some dinner. Looks like between you guys and us we will be scanning for 3 weeks strait... Devon is going in again for a scan on August 7th. So I appreciate the jitters believe me. But I know God is with us all.

I am jealous about all this exercise and running you guys are getting; sounds like great fun and what a stress relief. Are you secretly getting in shape for fall BT 5K walk (or should I say run for you?:)to beat us? Watch out everyone :)

Camp Sunshine was interesting... bitter sweet as I described on Devon's Paige but best part was meeting some of the mom & dad's from our Glioma group. That part was absolutely great. You guys just have to go.... Let's try together next year.

Well we did not hear back from R&McD camp, should probably follow up with them. So we may not see you there??? But we are getting ready for the Philly Dragon Boat race & fundraiser in October.

Have to go... Avatar is about to come on & Devon insists I watch it with her (although I love it myself... don't tell her).

Miss chatting with you and running into you at CHOP... wish you would stop by one of these days.
Banu www.endlesshope.org <banu@endlesshope.org>
Cherry Hill, NJ - Friday, July 18, 2008 6:52 PM CDT

Dear Kristin,

Ya'll are always in my thoughts and prayers!

Blessings,
Judy and Lisa

NC
- Wednesday, July 16, 2008 7:40 AM CDT

Dear Kristin,

Welcome home! It sounds like you had two wonderful weeks away. I never sleep either when I'm away. Loved reading about Rosie and finally Miss Genna jumping off the dock. I can't believe your Andrew is going to be 13 years old. Hope Dave got to relax and have some fun too.

I know it's impossible not to feel terrified around scan time. I'm sorry you all have to go through this. You guys have been doing good for so long. I truly believe everything will be stable or better. It's what I hope and pray for...for Genna.

Let me know when your going to be in Hazlet, if it's not too late now. I am 5 minutes away. I would love to pick us up some Dunkin Donuts Coffee, hang out with you, and watch Andrew play baseball!

Once again...welcome home. You were missed.

With Love & Hope, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Tuesday, July 15, 2008 10:59 PM CDT

I missed you! SOOOOO much! Glad you guys had a great trip. Soon. . .scans soon. YIKES.

xoxoxo~
Melissa & crew
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Tuesday, July 15, 2008 1:00 PM CDT

Dear Camiolo Family,
Welcome back! I'm so glad to hear that your vacation went well. I haven't been on the computer too much recently because my husband decided that it would be better for me to clean out the attic and bring down boxes and boxes of 20+ years of stuff that was hoarded up there (why???!!) because it would increase in value (???!!!). Yes, it is a hot and sticky job, but we are having insulation put in, so ultimately we WILL be cooler. Anyway, if you guys are bored, come on over and go through the treasure.

Thanks for thinking of our Sandra on her day. We did celebrate her life on That day and somehow got through...

Hope to see you soon. We've been taking the Gallic kids to a wonderful science program at Trailside on Wednesdays, call me if you would like to join us.
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Tuesday, July 15, 2008 9:32 AM CDT

Welcome back- I sure missed checking in on you guys. Kristin- even though I have never met you-I know one thing about you. You are an amazing mom, wife, friend, etc. Your family is very fortunate to have you. I am so sorry that your family has to live with this horrible disease. Please know you guys are in my thoughts and prayers. On July 28th, my office will light our candle for your girls and Katsie.
Angie Gubser <queenie_adb@yahoo.com >
TX - Tuesday, July 15, 2008 8:58 AM CDT

I'm glad you had a lovely and relaxing time - and thank you for thinking of us. I didn't know your father played the French Horn, my Tom plays it too - all his teenage years he was rushing around to youth orchestras and so on, it's a wonderful instrument though stressful for the mother when the haunting french horn solo goes funny ... Thinking of you, as always ...

love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Tuesday, July 15, 2008 4:04 AM CDT

Thinking of you, K - I know how stressful scan time is. Will be thinking happy thoughts and sending prayers upward. Glad you had a lovely vacay - was hoping you would :)
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Monday, July 14, 2008 8:47 AM CDT

ATTENTION PRAYER WARRIORS:

The Prayer Warriors at Angel_Wings
will be having a Prayer Vigil on Saturday,
July 19th between 8-9 P.M. EST for
all of the children and adults on our
prayer lists and our Angel Families.
Please join us in prayer for these
families.

MJ/Angel_Wings
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Monday, July 14, 2008 3:51 AM CDT

Yes, Kristin definitely does NOT stagger - she is a RUNNER! Whoo hoo!! And she did miraculous things with my beads. She's getting a nice cut when they sell...LOL.

Girl, I love you. Thanks for being you these past two weeks. I pray for you guys and for me...that we know the bottom line...God is good. He is good. He knows what He is about. We fricka fracka don't know...auugghh...but He knows what He is about. Bottom line.

See you for baseball. "You bring the Scrabble and I'll bring the Skip-Bo and I'll be to Hazlet a'fore ye!"
Rita "Pronounced in the Riccola voice" <auntrita7@aol.com>
Stirling, NJ usa - Sunday, July 13, 2008 9:48 PM CDT

Welcome back! Your vacation sounds exactly what was needed for all. Two weeks sounds heavenly. I am finally back home and don't need to go back to WI for the final two weeks of training. Mom was needed more here than there! I think nine books sounds like a pretty good number. I love to read and my list of "must reads" steadily gets longer. I am praying, praying, praying dear friend for the upcoming scans. Tell Miss G Carly got new glasses and we will post a new pic as soon as I can get organized.
Blessings, Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN - Sunday, July 13, 2008 7:08 PM CDT

ATTENTION PRAYER WARRIORS:

The Prayer Warriors at Angel_Wings
will be having a Prayer Vigil on Saturday,
June 19th between 8-9 P.M. EST for Genna and
all of the children and adults on our
prayer lists and our Angel Families.
Please join us in prayer for these
families.

MJ/Angel_Wings
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Sunday, July 13, 2008 4:33 PM CDT

So happy for you that you are relaxing (a bit) and enjoying sun and sand and the likes !!!!
We just got back from Camp Sunshine- You got to get there one day !!!!!!
Take care-
love, alice lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Friday, July 11, 2008 9:24 PM CDT

Hi Genna and Family I pray you can relax and just enjoy your time away. Please know that I am thinking about you and keeping you close in prayer.
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Thursday, July 10, 2008 8:31 PM CDT

I think that gets the prize for the shortest journal entry ever!
Relax and rest. Worrying doesn't change anything but your health. I will be praying for you especially at the cathedral in Sydney, and when hanging out with his Holiness.
peace & good - C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Thursday, July 10, 2008 10:38 AM CDT

We are thinking of you - relax and let us do the praying and worrying for you. Winter hit us for a day or so as it is here in Queensland but at least its come.
Diane
- Thursday, July 10, 2008 2:27 AM CDT

This is how I feel, the summer is going too fast!!!!

We are back home and catching up on all of our friends! Continuing to pray for you!!! I missed checking in while we were gone!

Blessings,
Judy and Lisa
Charlotte, NC
- Wednesday, July 9, 2008 10:44 AM CDT

I'm glad you are having fun. We have been thinking about you so much and missing you. Joey was horrified when I told him that you were still gone and then we were going to be gone after that. Way too much time without a Rosie connection! :0) I can't wait to hear all the details of your adventures in the wilderness! I am ready to go and relax, but I'm like you.....I hope I can relax!
Take care! We will call you when we get back from the lake!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Wednesday, July 9, 2008 0:23 AM CDT

Hey guys- I hope you are having a wonderful vacation. Please know you are missed- I cannot wait for the update. Angie
Angie Gubser <queenie_adb@yahoo.com>
Wheelock, TX - Sunday, July 6, 2008 8:12 PM CDT

Hi Genna and Family I hope you are having a wonderful vacation !! Please know that you are in my thoughts and prayers
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Sunday, July 6, 2008 6:15 AM CDT

hope your holiday is going great - the two weeks will just fly by.
Diane
- Friday, July 4, 2008 6:32 PM CDT

hey Camses one and all.
back from the cows in Minnesota (yes, there were cheesehead hats at the Wisconsin airport) and will be off to Sydney before you're back home. Please keep our trip in your prayers. Genna and Rosie I will be praying esp. for you at the cathedral shrine of Blessed Mary McKillop.
Love and Good,
"Aunt" Christine
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Wednesday, July 2, 2008 11:44 AM CDT

Hey Kristin & Family,
I am home and finally able to catch up on my CB friend's summer. I think you are actually on your vacation now and I hope you all are having a great time. I read all the journal entries that I have missed and as always; life is very interesting for you. One thing that stood out was the time that Miss G and you were able to get away by yourselves. Sounds like it was exactly what it was meant to be. Mercy Me is one of my very fave bands. Randall and I saw them a couple of years ago when they opened for Michael W. Smith and they were awesome. "I Can Only Imagine" holds special meaning for our family as I am sure it does for so many others.
I also loved the chipmunk story and believe me, at my house we would have been hanging from the ceiling. Any animal that moves faster than us is scary!
The wedding is a month away and today we spent the afternoon tying ribbons on sticks to wave as they exit the church after the ceremony. Not the guys favorite way to spend a Sunday afternoon! Carly is picking our new glasses tomorrow. Vision has changed a bit and so new glasses are needed. She is excited about being a bridesmaid.
Anyway, have a wonderful summer and I'll be praying for the scan.
Blessings, Val
Carly's MOm
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Sunday, June 29, 2008 5:43 PM CDT

Goooood morning Kristin, GennaHenna, Rosie, and allll the fam!!

Oh, man ... packing and preparing for trips ... SO NOT FUN. I always say that a family vacation is really not so much a vacation for Mom. Between the preparing to leave and the coming back to a blown-up house ... you need a vacation after the vacation. :) Good luck, though!!!

Splashy & Flippy the fish ... that's the greatest thing I've ever heard. :)

Hey, I LIVE where it sounds you'll be vacationing (as in, 20 minutes from civilization and $5 TP at the general store! lol) ... Let me know if you need some advice. :)

The cancer, pisces, scorpio thing ... **sigh** ... Give Genna a huge hug for me!!!!

I can so relate to the uber-Caucasian thing!!! Oh, man I hate exercise clothes!!! But ya gotta have them, right? (right?) :)

I hope you all have a wonderful time!!!! And, make sure you pack some extra chocolate in the cooler!! :)

(PS--I miss Sandy, too, and I never even had the privilege of meeting her.)

~Heide
m/o ^Jessica^ (forever 17) - & Jake (17)
caringbridge.org/visit/jessicarandall
TEAM UNITE! Help Conquer Childhood Cancer!
Heide
Marshall, VA - Sunday, June 29, 2008 8:37 AM CDT

Hey twin!
We were typing at the same time! I was updating Drew's page and you were leaving a message! Too funny!
I hope you have a fantabulous time at the lake! It will be all good and you so need the break!
We are thinking about you always and we are so glad you are having lots of "normal" fun stuff going on! Except for that exercise stuff.....that's really not normal you know!:0) Seriously, I am proud of you for doing it...you have the clothes, now you are really committed! I wish you could motivate me across the states.....I'm trying....walking, not running!
Take care and have lots of fun at the lake!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Friday, June 27, 2008 10:49 PM CDT

Have a great holiday and relax.....you'll have coffee and chocolate. What more is there! I look forward to hearing your rustic cabin stories upon your return! Travel safe.
Kelly
SK Canada - Friday, June 27, 2008 8:37 AM CDT

Have a great holiday. You are always in my thoughts and prayers - remember scan day is Mitchells 21st Birthday so its a great day and happy vibes will be coming your way.
Take care
Love and prayers
Diane
- Friday, June 27, 2008 7:05 AM CDT

Hi Genna and Family hope all that packing gets done !! I love vacations but I can do without the hassle of packing also. I hope you have a wonderful time. Please know that I will be thinking about you and keeping you in prayer
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, Ma - Friday, June 27, 2008 6:46 AM CDT

Oh how I relate to the packing...I have been a raving lunatic!

We are leaving in a few hours and I had to check in one last time!

I WILL be praying!

Blessings,
Judy, Pete, Christian, David, Rachel and Lisa

Charlotte, NC
- Friday, June 27, 2008 2:46 AM CDT

Dear Kristin,

I am reading...i promise...just been bad about writing...so sorry. As I write your 2 week vacation draws ever closer! I am so excited for your family to be able to escape the real world for a while (some of it anyway).

We have alot in common. I only drink from Farberware coffee pots too..don't sleep at night, and stop drinking coffee in the afternoon.

Please give Genna a hug from me. Tell her I said to have a wonderful, fun vacation. I am sure the trip will be relaxing for her.

Those pre-MRI jitters...a crummy, horrible way to live. I am sorry for all the stress and worries it brings to you. Hold on my friend.

Planning for Timmy's Tour de Shore is well underway. I so hope to see you again this year.

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Tuesday, June 24, 2008 9:32 PM CDT

Kristin...aside from the reg. BT stuff...it STILL gets crazy here; just like there! I had a bird flying around the DR last week (no, not either of the 2 parakeets, either)...no windows open...must have flown down the chimney in the LR...AND, my son had a bat in his bathroom! It was sleeping inside the hanging hand towel my 2 year old grand daughter was reaching for!!!...must go, praying for your restful, fun family times away. Nora just used her walkie-talkie to say 'Mom, I'll never give you up..No Way--Hose-A!'....loveyou..D.
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora)
Chardon, OH USA - Monday, June 23, 2008 3:01 PM CDT

Kristin and Family - your getaway sounds like heaven to me. I want to go! hehe. Praying for you all and specific prayers for your uneasyness...I know too well that feeling - sometimes being a mommy can be hard work when you get those "mommy gut instincts"...I will pray for you that its just the anxiety of scans and upcoming vacation and that all is and will be well!
God Bless,
Vicki C/AngelWings
Mom to Morgan, 15, ALL Leukemia/Off Treatment 6/08
Corson/Lamorey Family www.caringbridge.org/visit/morganelizabeth
- Monday, June 23, 2008 9:31 AM CDT

Hello internet friends !!! I hope your vacation is FANTASTIC !!!! A cabin in the woods for two weeks !!! Heaven !!!
Now, on to worry- I Really, Really Hope and pray that your weird feeling is simply PMS (you know the MRI kind)- It has been such a long time- I think the stress is worse the longer they are stable, 'cause if you're like me, you start feeling the odds aren't in your favor for it to Stay Stable the longer it is Stable !!! So, maybe you are just
scanning kind of stressed as opposed to knowing something kind of stressed ???
Hope So- Really, Really Hope So !!!
Wish you could be at camp, too-
One of these days-
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Monday, June 23, 2008 5:19 AM CDT

As usual in the midst of the sheer busyness of all our lives and the sticker shock of gas prices you gave me a good laugh (sorry the visual of the chipmunk before identification made me have an inappropriate reaction). Oh how I RELATE to the packing issues, I have been lamenting it for 2 days now and asking WHY can't I have a bigger car to hold just the medical junk????

Yes, I KNOW I am early; but, I will not have access to a computer at the appropriate time and this Patriotic American had to send you wishes on this special occasion coming up!

We are leaving Friday to take Christian to High Point and Pete to Johns Hopkins, so this may be my last GB entry before our journey. With how busy this summer has been, I wanted to make sure you knew we are thinking of you!

Blessings,
Judy, Pete, Christian, David, Rachel and Lisa

Charlotte, NC
- Monday, June 23, 2008 2:13 AM CDT

God, open my eyes so I may see
And feel Your presence close to me ...
Give me strength for my stumbling feet
As I battle the crowd on life's busy street,
And widen the vision of my unseeing eyes
So in passing faces I'll recognize
Not just a stranger, unloved and unknown,
But a friend with a heart that is much like my own ...
Give me perception to make me aware
That scattered profusely on life's thoroughfare
Are the best gifts of God that we daily pass by
As we look at the world with an unseeing eye.

~ Helen Steiner Rice ~

Angel w/Angel_Wings
Angel Venters, Moderator <angel2948@aol.com>
Greenville, NC USA - Sunday, June 22, 2008 9:59 AM CDT

Good morning Camiolos! I'm just sitting here having my morning coffee in my "LIVE THE FUNK" mug that arrived on Thursday! It's awesome! I may just have to revisit and see what else I can find! Great job on the designs!
I understand about the 2 week vacation! We haven't really done that in a very long time and are about to embark on ours in a couple of weeks. I'd take the 4 hour drive - ours is more like 18. BUT, I do not have to go without good coffee as there is no rustic cabin in our future. I have one child Kristin and he keeps me busy enough. I too wonder how families with multiple children do it. But you seem to manage so well. I love Dave's comment about therapy!
Must run, have a lovely weekend, and I noticed in Emily's note that she is going to move to Yakima? I have a friend there (another NF mom) if she needs anything, I'm sure Wendy could help her out; let me know and I can put them in touch.
Kelly
SK Canada - Saturday, June 21, 2008 9:19 AM CDT

Hello Camiolo clan! Portland is really nice, but really cold. I am not used to the time zone yet, so I have woken up at 4 and 2 in the morning the last two days, which needless to say makes me very tired. Today I have a lot more meetings and I get to meet my roommates! I met one of them last night and he seemed really nice, so today I will meet the other two and we will all be living in an apartment together for the next six weeks. Then I have some time that I don't know what to do with yet, so I may just move up to Yakima in early August, or I might try to figure out a way to visit people.

I hope you're all doing well, I'll call home soon!
Emily <emilyappert@gmail.com>
Portland, Oregon - Wednesday, June 18, 2008 9:13 AM CDT

Hi Cam's,
I always check in but hardly write. I am always saying prayers for you guys! Thank you so much for praying for my G. And give your G and huge hug for me for always praying and thinking of Gab's.
Hugs and Love,
Ori
Ori <harley00@nep.net>
- Tuesday, June 17, 2008 10:31 AM CDT

PLEASE JOIN OUR PRAYER VIGIL THURSDAY JUNE 19TH. 2008 BETWEEN THE HOURS OF 8-9 PM. EST. FOR GENNA AND ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS.

Tracy/Angel_Wings

Tracy/Angel_Wings <maverickmom08@sbcglobal.net>
- Saturday, June 14, 2008 5:17 PM CDT

Praying your weekend is wonderful and spent with those you love! WONDERFUL Photos, full of memories!!!

Blessings,
Judy, Pete, Christian, David, Rachel and Lisa
Charlotte, NC
- Friday, June 13, 2008 9:24 PM CDT

Great pics !!! Great entry !!! You said So much !!! It's late- I can't remember it to comment properly, but you are right, on all counts !!!
And this weekend of yours sounds like our past weekend, and i am Still re-grouping !!!!
Thanks for writing !!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Friday, June 13, 2008 9:20 PM CDT

Love the photos - great cake Rosie - you lucky girl.
Hope the weather is mild and the summer holidays are full of fun.
Diane
Australia, - Friday, June 13, 2008 5:33 AM CDT

So glad you got to go to the Pinnochios Genna! Looks like you had a great time!
I will check out the tie-dye Kristin - I am waiting for my Live the Funk mug to arrive!!!
Kelly
SK Canada - Thursday, June 12, 2008 8:55 PM CDT

So glad to meet you. Just wanted to let you know I am praying for you today. This won't be my last visit. i am keeping you close in my thoughts and prayers.
Michelle Council / Angel Wings <mcouncil@c-gate.net>
Laurel, MS USA - Wednesday, June 11, 2008 11:54 AM CDT

So glad you had a great time!! I'm sure it was very necessary to your overall mental well-being :)
Amanda Holman - Joshua's mom <aholman515@gmail.com>
Coopersville, Mi USA - Tuesday, June 10, 2008 7:24 AM CDT

Genna and Kristin,
I'm so glad you had such a wonderful time together. You so needed it. We are thinking about you always!
Love,
Reca
PS We need a happy medium with our weather between the east and the west. The news actually said that snow was in the forcast not too far from here. We had hot yesterday and cold today.....what a crazy start to our summer!
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, June 10, 2008 0:18 AM CDT

The weekend sounded amazing - so much fun - you both deserve it - except for the heat!! We are unusually warm and wet here for June.
Diane
Australia, - Monday, June 9, 2008 8:21 PM CDT

So happy to read about the great IEP...I always dread those things! Speaking of other things I dread..the dentist, poor sweet Rosie! As for the art lessons, how WONDERFUL!! What a great outlet for so many emotions and creative juices!!

Stopping in to say I hope your weekend is special and not too hot (They expect 100 degree weather here tomorrow, yikes!)

Always praying for you dear friends, even when I don't stop to say hello!

Blessings,
Judy and Lisa
Charlotte, NC
- Saturday, June 7, 2008 7:36 PM CDT

Hi Genna!

I can finally say that Flat Levi made it home Tuesday!! Can you believe Levi's teacher forgot poor Flat Levi on her desk for all this time??? I loved seeing the pictures of you and Rosie with him and hearing about all the fun things you did together! I hope one day the real Levi can meet the real Genna and the real Rosie :-)

Tell you mom Hi! and we liked reading all the cool facts about NJ!

Have a great weekend! I hope it's not as hot in NJ as it is in VA!

Love,
Melina and Levi www3.caringbridge.org/va/levi <melina_mayo@yahoo.com>
New Castle, VA USA - Friday, June 6, 2008 4:39 PM CDT

Dear Genna,
I'm so glad that you like the art lessons with Mrs. Brown. Sandra went there for many years, loved hanging out with Mrs. Brown, and made many interesting things. I enjoyed picking her up from her art lessons -- she was always so enthusiastic about everything. Oh, and, by the way, Mrs. Brown has a pool in the back, and the kids were able to use it at the end of the school year.
Well, say hi to the rest of the gang. Hope to see you in the summer!

Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Friday, June 6, 2008 0:44 AM CDT

Checking in on you from work - my bacteria are now trying to make a protein that they shouldn't ... could be my hopeless attampts at sterile technique, maybe I mixed them up somehow .... I'm so pleased about the art therapy, it sounds perfect. And the IEP meeting too - congratulations to Genna. I used to think art therapy or music therapy would be good but we didn't get them organised, and in fact I think James got the happiness of creation from his woodwork. But just one thing to really look forward to, and feel a sense of achievement from, is so good.

Lots of love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Wednesday, June 4, 2008 2:02 PM CDT

Hey Cams!
I am so glad you have so much happy! I so wish we had an art therapy type person around here. It would be awesome for so many reasons......my poor children have my creativity, as in not a lot.
We are in insane mode right now, only two days left! It leaves me in panic attack mode all the time.....what am I forgetting? Not to mention that we scan on June 13th! ARGH!
I am so glad the IEP, art, everything went well! I will be picking your brain about IEP stuff, I need to set up some new things for Drew for next year. I have to finish the school year first though!

We are thinking about you always!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, June 3, 2008 11:03 PM CDT

July 28th is one of the few days I will be in the near vicinity of my home this summer. So much for the association pool... But I will be reachable, and praying.
SO glad but not surprised that the art therapy is good. Good for you for working it out - sounds perfect for G. Of course her superhero answer made me get all ferklempt. Senior dinner is Friday so I am getting mushy all over the place. Now I know why JP's mom was crying while putting candles in his 18th birthday cake.
But enough about me. Sounds like things are being well managed by the testing folks etc... good news.
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Tuesday, June 3, 2008 10:31 PM CDT

Firstly July 28 is a wonderful day so things will go wonderfully well - My youngest will be 21 that day - so see it is a great day. Secondly - Yeah Genna for being a super hero to kids and for having such a wonderful time at Art Class. Life is good - have a great summer Vacation (as we head into Winter)
Take care
Love and prayers
Diane
australia , - Tuesday, June 3, 2008 10:01 PM CDT

Glad to hear that IEP meeting went so well !!! You sounded like you did a Fine job !!!
and Lexie takes art, has taken art, will be taking art, and Knows it is good therapy for her- "Mom, art helps me calm down when I'm upset !!!" so there you go !!!
Just checking in to say Hi and thanks for keeping in touch with us !!!
love alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Tuesday, June 3, 2008 9:28 PM CDT

Hi Genna I will be praying for the food situation to improve. The art classes sound wonderful and I am sure you will enjoy them. Please know that I will be thinking about you and keeping you in prayer.
MJ/Angel_Wings <marijeighn@gmail.com>
Gardner, MA - Tuesday, June 3, 2008 9:44 AM CDT

That damn tumour - G deserves happy and it continues to make its presence felt. Its not fair - she may find an artistic talent that will surpass all other things!!!!!
Congrats Andrew and Dave what wonderful role models you are - and oh so fit ones!!! Rosie may need some longer legs for the catwalk it must be fun to see
Diane
Australia, - Monday, June 2, 2008 9:24 PM CDT

hang in.
I bet when G gets some art stuff, it may give her a distraction from the food stuff.
My roses are exploding... so I can hardly imagine what your garden paradise looks like these days!
hugs to the girls, and a pound for A's fabulous racing prowess!
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Monday, June 2, 2008 2:19 PM CDT

That's a darling video of Rosie.

My kids would never, never, in a million years, get up in front of an audience and sing like Rosie did. Never.

She's awesome.

Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Monday, June 2, 2008 1:23 AM CDT

Dear Camiolo Family,

Congratulations to Andrew, Dave, John and his dad for doing such a wonderful job running today. Andrew, you looked so good in his Lance Armstrong shirt, so much older than the boy I remember from last year. You and your friend, John, came in at the head of the pack and I think your time was very good. Meanwhile, where did you leave your mom and the girls? Didn't they say that they were training?
Well, maybe next year...
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Sunday, June 1, 2008 8:16 PM CDT

Kristin,

Just wanted to let you know that I DID land the job at Children's Hospital - Denver. (Instead of Choparoni, does that make it Chodaroni?) Anyhow, so much of your story inspired me to even try working with this population and I wanted to thank you again.

PS Tell Genna I have ONE chocolate brain left, and I'm saving it for finals next week. =)
Tatiana R. aka Ms. 100,000
Denver, CO - Thursday, May 29, 2008 11:06 PM CDT

Happy Belated Birthday to one precious little girl!!!

Oh, is she a doll or what??? Thanks for sharing this Kristin, I really enjoyed it.

Praying for those s.....? I won't say the word.

Blessings,

Susan
Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Thursday, May 29, 2008 9:17 PM CDT

Dearest Rosie,

I am so sorry for not saying HAPPY BIRTHDAY sooner!!!!

Oh Kristin, I don't think you are ridiculous for being shocked over age six!! I will do the same thing when Lisa turns six!

Sending Smiles and Prayers your way!!

Blessings,
Judy and Lisa

NC
- Thursday, May 29, 2008 2:17 AM CDT

Dear Kristin,

Yes it's me...I am so sorry I haven't written for a while. I have been reading your updates, but busy and a bit overwhelmed to put messages in guest books.

Happy Birthday Sweetheart Rosie! It sounds like she had the perfect birthday party. Genna did such a great job as helper. Please give both those girls a hug from me....

It's funny about the exercising. You...Sarah and me too. Instead of spending an hour in the morning on the computer, I have been out walking and doing all these workouts on "on demand cable tv". What has gotten in to us?

I hope to update Timmy's site soon. I have so much to share.

Stay well everyone.

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Wednesday, May 28, 2008 9:48 PM CDT

Dear Rosie,
Happy Birthday! I love your video, and you're holding a chocolate chip cookie -- my favorite. So what if the dentist told me yesterday,"no chewy cookies", I'd rather listen to your advice and say "it's good enough for me!"

We spent a wonderful time with your Mom yesterday, and she got to have her own spot on a tv station. How neat is that? And also, because Sandra's wonderful doctor rushed over from Newark to be with us and was able to calmly talk about NF stuff, we didn't have to worry about what the two of us were going to say for a whole half of an hour. You see, we just don't look that cute singing "C is for cookie, or the other song, "God Bless my Underwear."

So things turned out, we can count backwards (sometimes!), and maybe we helped someone out there. Seriously, Kristin, when I heard you saying the numbers, I thought you were purposely saying someone's phone number, and all I could think of was how clever you are!

Thanks for coming with me, now on to the Academy Awards...
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Wednesday, May 28, 2008 8:11 AM CDT

ha ha guess it's just that Year for us all with the license thing - renewed mine this month b/c otherwise I'd be running to DMV between Minnesota and Sydney, and who needs that? But the funny thing is - they let me keep my photo! So I look 4 years younger- all that fashion trauma for nothing.
Happy Birthday to Rosie. I remember where you were and what you were wearing when you told me you were expecting her - clothes must be some kind of odd thing with us. I can't believe she's a KID and far from baby. Wow.
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Tuesday, May 27, 2008 10:46 PM CDT

I love the video of Rosie. She's so sweet, and lovely singing too. Happy birthday to your 6 year old.

I've been taking exercise too - I got a bike at the weekend - I know how James felt about his tricycle now, I almost wanted to give it a name. I cycled the last 6 miles to college, and the first 6 miles back so I'll see if I ache tomorrow. It cuts out a bus ride and is so much nicer, through fields of spring flowers part of the way.

Love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Tuesday, May 27, 2008 4:41 PM CDT

Never too busy to stop by and let you know I am thinking of you and wish you a

Praying for you always. I hope the fun has been great at your house, but the excitement (if you know what I mean) minimal!!!

Blessings,
Judy
Lisa's website
- Monday, May 26, 2008 1:46 PM CDT

Rosie is the quintessential confirmation that the Apple (or Appert) does not fall far from the tree :)
I totally missed you guys on Thursday - major bummer.
I was going to ask about magnifiers for G, until you mentioned they're hard to use... seems like someone would have thought that one through.
Thinking of you all. Hugs for the girls and a hi to A.
Christine
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Friday, May 23, 2008 10:27 PM CDT

Now I am truly a schmuck - I thought of you on YOUR birthday - KA (still that to me) and thought - if I send her a note she'll be wondering "who is this?" I should always know better! Thank you for the honorary mention - I feel quite honored! :-) loved the Utube clip - I hope you had a spectacular birthday - Genna, Rosie & Andrew - your mom is the BOMB! Lastly and probably with quite too much info - my boys are into Star Wars so badly that my little one sleeps with his light saber - I guess it runs in the genes! As always, you are all an inspiration to me - & PS - the running gets easier as you go - I promise!
Amy
Hatboro, pa usa - Friday, May 23, 2008 9:11 PM CDT

A note to Rosie from Joey:

Your singing was very, very, very, very, very, very good! (He told me to put a lot of verys in there, I hope that was enough!)
Love,
Joey

To Genna from Drew:
What do you say to the lady at fruit stand?
It is grape to meet you!
(I think he made that one up!)
What did the guy say to the lady at the vegetable stand?
Lettuce sit and talk.
(and that one too!)
Your friend,
Andrew
Reca Thomasson <rmthomasson@cableone.net>
- Friday, May 23, 2008 8:50 PM CDT

Go Rosie!!!!!! Loved your singing C is for Cookie - the Piano player did well too.
Love and prayers
Diane
Australia - Friday, May 23, 2008 4:23 PM CDT

Hi Girls!
I have too many things to say.....things have just been crazy around here lately. We think about you and check on you and talk about you all the time, I just haven't been good at posting lately! I am hoping this summer is better.....it's almost here! 10 more days! Yeah!!
The boys have things made for you.....now Mom needs to get them in the mail! They got your pictures and loved them, of course!

So here are a couple messages from the boys while you are waiting for snail mail!
Joey says: Happy Birthday Rosie! I love you! I mean it Rosie. :0) (his words!)
a joke from Joey:
Knock Knock
who's there?
you
you who?
I love you. (do I see a theme here?!)

What did the bee say when it returned to the hive?
Honey, I'm home.
(a little help from Drew's joke book!)

Drew says: Happy birthday to you, happy birthday to you. Happy birthday dear Rosie, we all love you!
For Genna from Drew:
Great person
Everyone likes her
Never mean
Nice
A great pen pal

What do you say to a bunny when he is born?
Hoppy Birthday

What do you call a team of monkeys that wins the big game?
Chimpions

What is a crazy bird's favorite drink?
cuckoo cola

We are thinking about you always! Drew has been asking me daily if G is feeling better.

Hope you are having a good week. We had rain today so we are very WET!
Take care!
Love,
Reca and the boys
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, May 20, 2008 8:42 PM CDT

hi Genna!

Your trip sounds like it is going to be fun and exciting! I took a trip with my mom in April. We drove to Boston and listened to 'books on tape' the whole way there and back. We only got through one 'book'. It was about famous women writers and their relationships with their dogs! It might not sound so interesting, but it was! Every bathroom stop was rushed so that we could get back to the story. I did sleep through some of it on the way back though. I was kind of tired because my mom likes to make music during the day and at night (when she goes from alto to baritone!). ;)Ha ha!
renata <rblumberg@gmail.com>
minneapolis, mn - Tuesday, May 20, 2008 6:43 PM CDT

It is going to be wilder than usual at my house this week, so I wanted to tell you I am and wish you a BEAUTIFUL week, full of love and people to help you out! May you have smiles and joys you have never known!!! Please know I am ALWAYS praying for you!!! YEA for having a WINNER in the family (My sister wins all kinds of things off the radio..she even won a car!) ME?? I never win....)

Blessings,
Judy and Lisa
NC
- Monday, May 19, 2008 5:49 AM CDT

HI Camiolo's,
My name is Denis Murphy and I am a friend of Alice Williams. Jaclyn my daughter battles medullo. I am working on pairing up Genna and Rosie with college sports teams. I'll keep you posted and look forward to speaking with the C team. www.FriendsofJAclyn.org
Mr. Murph
Denis Murphy <ny88dm@aol.com>
Hopewell Jct, ny - Saturday, May 17, 2008 9:44 PM CDT

Hello friends- Unfortunately, these days Snarkyism is sometimes in FULL swing by he middle of fourth grade !!! Where did all the innocence go ??? I work in a large elementary school and it seems to me that fourth grade has changed dramatically since we were kids- Now, they can be So Mean, and the Mood swings- so a kid could be mean one day and sweet another !!! Yikes !!!!
Swimming IS great, but I think our BT kids have a long slow mind body connection- so Learning swimming takes a very long time- It IS worth it, in the long run- Lexie takes an abnormally Long time to get a stroke, or correct a bad habit - Oh, well- We have nothing BUT time !!!
And Yes, we Need to Find a CURE !!!!
Thinking about you a Lot !!!!!
love, alice and lexie
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Saturday, May 17, 2008 7:52 PM CDT

Good morning Team CAM!!!! :)

Happy belated birthday to all those folks ... HOW YOUNG ARE YOU GUYS, anyway??!?! lol ... You've got 15 and 16 year old cousins and siblings? Good for YOU!! :)

Had to literally LOL at your food arrangements ... bread in the armoire, cheese at Mom's!!! Awesome!!! :) Must make looking for underwear quite entertaining! I know it's not actually a humorous situation, but I (like YOU) try to find the humor in just about anything. Keeps life from getting to UGHULOUS, right?

Kristin, glad to hear your teaching is going well, but for GOD'S SAKE, get some comfier grown-up/teacher shoes!! Thank goodness for Dora bandaids.

Congrats to Andrew on a good showing at the Science Fair!! Sounds like there were some great awareness-inspiring projects there!! That's awesome!

OMG, I can't believe you watched them set Andrew's finger!!! ACK!! Could never do that in a million years (and, like you, I've seen a number of icky procedures, but that one sounds incredibly not-watchable). Hope his finger heals quickly!!

Glad you Switchfoot concert ended well, after a seemingly rocky start.

Can you tell I'm doing a TON of catch-up with Camiolo Tales?

Glad G's counseling is going pretty well. I think it will help in the long run, for sure.

Hope everyone is fever-less, glooby-less, and just generally ick-less this weekend!

Um, 50-mile and 100-mile marathons ... WOW!!! Yeti John, I commend you!!!!!!!!! Definitely tired myself out just typing that!!

SO excited for your trip to the Pinocchio Mountains!! AWESOME!!! And, I hope that if there's a hike, it's a GOOD one (kind of a 4-letter word in my book, too, I must admit).

Can't wait to hear about the final party preparations that Rosie decides upon!! Sounds like she's DEFINITELY got a future in event planning!!! lol

And Genna with the radio show call-ins!! That girl cracks me UP!!! So cool!!!! :) Props to Mom for follow-through, and congrats on the tickets!!

Kristin, I can ALWAYS count on you for awesome new words!!!! snarkiliousness is definitely my latest fave!! And, yes, 4th grade girls CAN be incredibly snarky!!!! It sucks, but it's true. Genna is my hero, though, in that she just lets that stuff slide off her back and goes on her merry way. Good for her.

I've been writing this entry for so long now and I hope the page doesn't time out when I post (definitely doing a CTRL-C before hitting "preview"). Sorry that it's all over the place, but I pretty much commented as I was reading ... Should make for an interesting read, at any rate. Heck, I'm interested in reading it MYSELF!!! haha

Congratulations to G for making the paper!!!! Do we get to see her drawing? I'd love to see it!!

OK, I should end this now. It's getting a bit manic. Kristin, I can't wait to see your YetiFunk products on cafepress!!!!! You're probably done with designing stuff, but let me know if you could use any help. I'm on a cafepress product design kick and I'm always looking for new projects!!! :)

Have a great weekend, Camiolos!!!

~Heide
m/o ^Jessica^; forever 17 -
caringbridge.org/visit/jessicarandall
TEAM UNITE! Help Conquer Childhood Cancer!
Heide
Marshall, VA - Saturday, May 17, 2008 9:13 AM CDT

"To have courage for whatever comes in life- everything lies in that." Teresa of Avila
HAPPY BIRTHDAY to a woman of courage... who knew friendship could last this long, run this deep, or be this liberating?

Please, please don't shun me for coffee now that I let the cat out :)
love you, sister-friend.
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Friday, May 16, 2008 10:07 PM CDT

Glad you're feeling better Genna! Your trip with your Mom sounds wonderful! I wish I had been able to do that when I was turning 10 (oh so many years ago!) I'm glad Andrew is going to be able to play some ball this year! We have just started that at our place, and it's, well, it's interesting! And Miss Rosie, you go girl! That animal party sounds like fun! Wish I lived closer!
Kristin - you're this busy and school's not out yet?? Not a good sign. Thanks for your support this week - sorry to have added to your exasperation, but thanks! Well, it's a long weekend here and we are looking forward to some good weather! Take care and have a good weekend!
Kelly
SK Canada - Friday, May 16, 2008 6:14 PM CDT

ATTENTION PRAYER WARRIORS
The prayer warriors at Angel Wings will
be having a prayer vigil Monday May 19th.
between the hours of 8-9pm.EST for all the
families on our prayer list and our Angel families
of AngelWingsRemembers.Please join us in prayer
for all these families..

Etta/Angel_Wings <grandmaettas@aol.com>
- Friday, May 16, 2008 10:27 AM CDT

Hi Genna and Family,
Sounds like all of ya'll will enjoy spending time at the Y. Have a good weekend.
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Thursday, May 15, 2008 5:35 PM CDT

Hey Miss Genna,
I hope you are not "horribly clogged" anymore. Drew and Joey hope you feel better soon! I have to agree with Mom and Dad about you going to school so you could make it to your trip. I would have done the same thing! :0) Bt life gives you a whole different perspective on little decisions like that!
Here's a little joke to help you feel better!

knock! knock!
who's there?
boo
boo who?
Don't cry it's only a joke!
That was from Joey can you tell?! Joey also says, "Hi I love you Rosie." :0)

Take care Cams!
We are thinking about you always!
Love,
Reca and the boys
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, May 13, 2008 9:22 PM CDT

I'm not sure when I last saw Genna. But I still cracked up when I gave her a hug Sunday and asked how are you... the response? "Horribly Clogged." emphatically. with a smile. And then off she went.
Great to have seen you albeit briefly and in Growing Articness in your driveway. We need to make coffee happen, even if preempted by hairdos.
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Monday, May 12, 2008 7:01 PM CDT

Hello friend- I can't believe that melatonin isn't doing squat for Genna- That's just wrong !!!! It has been SO great for Lexie !!! Wrong, wrong wrong !!!! And to get a cold right in time for the field trip day- wrong, wrong , wrong !!! At least she got to Go !!! (I'll never tell!!)- And No Port- so No ER visit !!!!! WOOHOO !!!!
Anyway, I was just thinking of you guys and thought I'd write- When the Wall of Courage is done, I'll get you a pic of it !!! Your kids faces are Really adding an extra cute quotient, but I got to tell you- They're All cute !!! You'd think we asked for kids with Cute faces, instead of kids with lowgrade tumors !!!! Go Figure !!!
take care-
love, alice and lexie
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Monday, May 12, 2008 3:31 PM CDT

A woman of noble character who can find?
She is worth far more than rubies.

~Proverbs 31:10 (NIV)

Love and Blessings,
Judy and Lisa

NC
- Sunday, May 11, 2008 3:04 PM CDT

Dear Kristin,
Here are all of the reasons why you should teach: You are humorous, you can write, you know some science (basically everything about optic gliomas and nf), you probably can do the math (isn't cross stitching and cookie baking math?),you are so effective in reaching out to people,and you care so much for others. The students who will be in your class will probably consider themselves fortunate in being there -- you have so much to give. And, sadly enough, it is because of the medical stuff that you are involved with, that your gift is even more valuable -- it has probably changed you to become more critical of yourself, questioning every nuance, not taking anything for granted.
Well, it's getting late and it is now officially Mother's Day. I hope that you have a beautiful holiday with your curly haired trio. You are one terrific mom.

Marta Blumberg <knitinune@hotmail.com>
Watchung, NJ USA - Saturday, May 10, 2008 11:45 PM CDT

Dear Kristin,

Just stopping by to wish someone very special...a very Happy Mother's Day. You are always so hard on yourself, but all of us out here in the Caringbridge world know you are the original "supermom" with the most giving, caring heart.

I hope you get to take the day off tomorrow and enjoy some quiet time to yourself. Yikes...it almost is tomorrow as I type this.

My son Andrew is graduating tomorrow, getting his Master's Degree. I must go to bed so I can be proud mom, and not tired mom tomorrow morning.

Happy Mother's Day my friend.

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Saturday, May 10, 2008 10:58 PM CDT

Stopping by to say Hi.
Have a nice weekend.
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Saturday, May 10, 2008 6:29 AM CDT

thanks for the shout for baby Andrew- it's been so weird checking regularly on two caringbridge pages.
and as for teaching - you can do ANYTHING - and they'd be crazy not to jump at the opportunity to have you!
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Friday, May 9, 2008 9:44 PM CDT

Happy Early Mother's Day! This might be my only chance to check in on one of my favorite families in the whole wide world so thought I would say it now! I am home for Elise's graduation tomorrow and then back to school for me Sunday afternoon. Carr seems to be handling my absence for now though homework with her dad seems to be a struggle so I understand your struggles with Miss G on that front. I just tell Carr that there is just a couple of weeks left and then summer...
I will be praying for the upcoming scan and Miss G and the whole sight thing. Stupid tumors!
Love & Blessings,
Val (Carly's Mom)
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Friday, May 9, 2008 7:45 PM CDT

Hey Kristen,

Wow, you sure keep yourself very busy! I was so surprised to read about Andrew! Just want you needed...

Just stopping by to wish you a wonderful Mother's Day!

You are just so dedicated to your children, and I wanted you to know how much I admire you.

Blessings to you~

Susan
Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Friday, May 9, 2008 5:50 PM CDT

SO many worries and concerns, I am giving them all to the Lord to take care of!!

I think I will have to buy a few Hula Hoops for Christian's party...thanks for the idea!!!

Love and Blessings,
Judy and Lisa
NC
- Friday, May 9, 2008 3:09 AM CDT

Hey Miss Kristin!
It is took early to start the PMS stuff.....and she is NOT having vision issues, because I said so! I hope all the teacher/work stuff works out. Joey and Drew both give me a hard time when we do homework. I keep telling them that I actually get paid to teach children and they listen to me.....why is it so hard for my own children?! Maybe we need to switch children for homework time and maybe that would work better! Just one more reason we need to live closer!
Take care! We are thinking about you!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, May 8, 2008 9:38 PM CDT

I haven't entered a comment in awhile - but the hula hoop story brought back memories - KA (as you will always be in my heart) Happy Mom's Day - you deserve a day off! Genna - I love your new pictures - you all look wonderful - Andrew - sorry dude about the no playing sports, I think our whole house would shut down if that happened here! Have a great weekend and again Happy Mother's Day!
Amy
Hatboro, pa usa - Thursday, May 8, 2008 12:41 AM CDT

Sending Heart Hugs and Kisses to you!!

Love and Blessings,
Judy and Lisa
NC
- Wednesday, May 7, 2008 10:42 PM CDT

We thought you might need a little smile today...hope this helps!

Praying for BOTH Andrews and for ALL of you!!!

glitter-graphics.com

Love and Blessings,
Judy and Lisa
Charlotte, NC
- Tuesday, May 6, 2008 8:55 AM CDT

I seriously cannot imagine Genna smiling quietly. That must have been some sight!
Glad you had fun. Hope Andrew is back to his old self very very soon!
Christine
Christine <mithril1971@gmail.com>
Hillsborough, nJ USA - Monday, May 5, 2008 11:56 PM CDT

I wanted to let you know that I am praying for you.
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Monday, May 5, 2008 9:51 PM CDT

Andrew, This little Puppy wanted to send you some kisses, he heard how tough you are!!!

Sending happy thoughts and smiles to you and keeping you in my prayers ALWAYS!!!

Hugs to all of you, my dear friend!

Blessings,
Judy and Lisa
NC
- Saturday, May 3, 2008 8:20 PM CDT

Hey Kristin,
Andrew is one tough guy, I would have been crying big time. Sorry that he will be missing his games. I hope Rosie is doing better, also. I gt the email from your sister,but didn't open till last night due to not having computer access for the first few days here. Read Carr's CB for the update on our latest happenings. Anytime your sister would want to use Carr's story she doesn't have to ask next time. Anything to make people more aware!
Well, hope your weekend is uneventful and I'll check in soon. give Miss G a hug for me.
Blessings, Val
Carly's Mom
valerie Hiers <vhiers1@yahoo.com>
Peru, IN - Saturday, May 3, 2008 5:30 PM CDT

Well, it's certainly never dull at your house. Maybe that's what I should add to my prayers for you guys, a nice long period of dull. Tell Andrew I hope the pain goes quickly and I'm sorry he has to miss those games, that's such a bummer at that age. I hope Rosie is feeling better and that she refrains from sharing her sickness with the rest of you! And I am so glad G liked the lady you found, I continue to pray for resolution or at least peaceful control of the situation. Charlotte just asked what I was doing and when I told her she said "oh, my friend with the bumpy hair? I love bumps!"

I also thought of you the other day, I was in ACMoore and saw a pack of puzzle cut outs in the scrapbook isle.

With Love,
Sherry-Lee
www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <sherrylee440@aol.com>
Broomall, PA USA - Saturday, May 3, 2008 10:15 AM CDT

Wishing you the best in the upcoming times. May the Lord be with you during this trying time, as my prayers will be.
Natalie
- Friday, May 2, 2008 6:43 PM CDT

Poor Andrew and Rosie,

I'm glad Genna's 'person to talk to' is looking good.

When my Ben broke his collarbone, he was around 9. The GP said it was not broken and it was a few days before I took him to the hospital - I felt awful as I'd been saying don't be silly, the doctor says it's fine, anyway Ben had the X-ray and he wanted a copy. The doctor at the hospital said he wasn't allowed to give the X-ray away 'but I've often thought, if I left them on the table and went out of the room, and a patient put one under his jumper, we'd never notice.' So Ben has the X-ray, a clear break.

Thank you for checking on us.

Love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Friday, May 2, 2008 4:24 PM CDT

Oh, Andrew....I am so sorry. Kristin, you scared me to death! I started reading and was trying to figure out what Rosie might have (bt related) with the fever....I wasn't even thinking that Andrew would want to get in on all the hospital fun! Poor guy, a month...at this time of year.....so not fair.
I hope Rosie's feeling better, Andrew isn't too depressed and that your heart has slowed down a bit.
We are thinking about you! I am trying to think about things to do for a month....Drew did do stitches twice in one summer one time. He got the stitches (13) and then 4 days after they came out, he fell and landed on the edge of a sidewalk and split it open again. Loads of fun!
Take care!
I guess we passed the "bad luck torch" to you for this week! I'm sorry!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Friday, May 2, 2008 0:39 AM CDT

Hey Miss Rosie!
We hope you are feeling better soon!
Take care, we're thinking about you!
Love,
Joey, Drew and Reca
Reca Thomasson <rmthomasson@cableone.net>
- Wednesday, April 30, 2008 10:19 PM CDT

Hi!
I'm so glad your crazy weekend went well. I am so excited for your upcoming events....Joey loves Max and Ruby!
Drew didn't warm up to his counselor person right at first, but now even just one visit and it helps. It took a couple times before Drew wasn't dragging his feet. They have to build that trust about to be able to talk about stuff that embarrasses them, but once it's there, it works......it did for Drew anyway. And it really helped. I so hope it helps G, it's not fair that you are all having to go through the food issues.
We are thinking about you always. I was telling the boys that we need to think of something special for the girls because we have been such terrible pen pals lately!
I better go for now!
Take care!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, April 29, 2008 11:12 PM CDT

yes, it IS alarming to read of your rockful glory.
glad G got to talk to someone- hoping it is really Helpful, and guessing that just getting that one on one time with someone Just For Her will also be a relief to her.
Hope to catch up soon. Glad to hear you're all surviving the last quarter of school (thus far).
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Tuesday, April 29, 2008 10:20 PM CDT

Sending love and hugs your way!! Continuing to pray! Lots going on as usual!!!

Blessings,
Judy and Lisa

You cannot add any time to your life by worrying about it. ~Matthew 6:27
- Tuesday, April 29, 2008 9:46 PM CDT

Kris, thanks again for all your help with my project. i really appreciate it.
(i am seriously considering having genna do her tpcv cheer for the judges-might get me kudos points) : )
Laura <lappert93@gmail.com>
Warren, NJ USA - Sunday, April 27, 2008 9:54 PM CDT

and I are sending Rainbows your way!!!

Stopping in to let you know I'm still praying! I am sorry it has been so long. I always keep you in my heart and ask God to protect you!

I love reading your updates, they are always so chockful of stuff! I wish I was there to have some cake...not that I need it! It sounds yummy (and I love chocolate covered strawberries)!

Have a great week!

Love and Blessings,
Judy and Lisa
Charlotte, NC
- Sunday, April 27, 2008 6:37 PM CDT

So what do you do with your spare time!!!! Busy busy busy. Hope Gennas visit goes well and some issues become non issues.
Diane
- Friday, April 25, 2008 5:53 PM CDT

Love the new photos - Andrew is growing up so fast - quite the young man. Of course the girls are gorgeous - Genna sounds just like me - thousands of words need to be said in the day. (write the way I speak!!!) I can't believe its been 19.5 months off Chemo. Where does the time go. Saddened by Gabs news - news no one wanted.
Take care - love and prayers
HAPPY BIRTHDAY DAVE!!! HAVE A GREAT ONE
Diane
- Thursday, April 24, 2008 3:42 AM CDT

Dear Kristin,

LOVE the new pictures.

I think all your yikes and tightness is the chest is because you care so deeply about all the other families fighting NF. I know how much you are hurting over Gabbie...I know.

Try to spend some time outdoors tomorrow...put your face to the 80 degree sun and clear your head for a moment.

Your doing a great job Kristin.

Hugs to your girls.

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Wednesday, April 23, 2008 10:42 PM CDT

Your kids are SO cute (sorry Andrew) but they ARE !!!!
I get that same Yikes tight chest thing sometimes, and have to remember to breathe- It is Annoying- Who has Time for anxiety attacks ???
Sorry about your friend Gabby- sounds hard-
Just wanted you to know we are thinking of you today- well, all days, but I am writing today !!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
;lakeville, ma. - Wednesday, April 23, 2008 9:16 PM CDT

beautiful new pics. I am officially AMAZED at Rosie's hair.
I think your next scan may be while we're with Papa Ben in OZ, so you'll have extra prayers, but (ugh) I will be untextable.
love,
Christine
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Wednesday, April 23, 2008 8:20 PM CDT

Thinking of you and the family often. Glad to hear things are holding steady for you :)
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Tuesday, April 22, 2008 9:48 PM CDT

Dear Kristen and Genna,

First of all, thank you SOOOOOOOOOOOOO much for the chocolate brains and crayon drawings. That was SO awesome! I have the drawing on my refrigerator for everyone to see. Also, (Genna, you can appreciate this!) I had a mid-term (super-hard test) today at school and ate a chocolate brain beforehand. Therefore, I think I was extra smart and performed brilliantly all because of YOU! So thankyouthankyouthankyouthankyouthankyouthankyou!

Your friend,
Tatiana aka Ms 100,000
Tatiana
Denver, CO - Tuesday, April 22, 2008 1:49 PM CDT

Kristin~so I just finished my ummm. . .2nd cup of coffee with fat free french vanilla creme. I could stand about a dozen more, thinking I might have slept about a hour last night. Uuuggghhh. . .I would love, like Heide, to be with you & Kell, for a coffee date anyday.

Thankful for the real sunshine, still holding out that the metaphoric sunshine is on it's way. What is it with our girls and their eyes?? Katsie said to me last Sunday after she got in the car from visiting her Dad for the weekend, I can't see out of my eye. . .I'm trying to not have a car accident, and asking, "what did you say??" To which she replied, "My eye, this one, I can't see out of it really." Oy vey. And we wonder why we're neurotic. Really, how could we be anything but!

Still remembering to HOPE!

xoxoxo-
Melissa & Katsie
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Tuesday, April 22, 2008 10:08 AM CDT

Kristin....thinking of your sweet family today...Nora is napping and I need to mop the floor (oh yes, all those chores of course never need to be done while our children are in 'crisis mode"!!!....perhaps will sew a bit later, or therapy-knit??? But need to remember to do the chickens and lug water for the 3 maple trees A. planted...oh, and 'spritz' the greenhouse....then collapse!!?? At least you can't say I'm sitting idle...oh, grandbaby #4 due next week....life continues amidst the unbearable...that part both refreshes and drowns me!! Deedy
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora) <deidreun@yahoo.com>
Chardon, OH USA - Monday, April 21, 2008 12:10 AM CDT

hi my friend. glad you know you don't have to "know what to say" to me... gibberish is just as valuable as the intellectual stuff. Somehow, I don't think in all these (yikes) decades we've run out of things to say.
hope you do find that time with G.
let's find our May-date soon.
C
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Monday, April 21, 2008 10:40 AM CDT

Hi Cams!
Thank you so much for the post, the package, the phone call. You guys are the best. Drew thinks it is pretty funny that Rosie is so shy and G is so not shy. :0) They both loved their conversations, it was so what they needed today. It was a hard weekend without Miss Kally, we are all missing her so much. We didn't have near enough time with her.
Thank you again for being such wonderful friends, we so need to come together in person. Don't you want to venture out to the wild, wild, west?! :0)

Take care and have a good week!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, April 20, 2008 10:36 PM CDT

Kristin,

I love the new pictures of the kids. They are growing up so quickly... Just want to let you know... as I was going crazy with Devon's behavior, Dr. Armstrong at CHOP recommended these books written by Louise Bates Ames, PhD. & Carol Chase Haber M.A. at Yale university... They are titled "Your --- Year Old". I got both "Your 8 Year old and 6 year old" and ordered 9 & 7 yr old version from Barnes and Noble. These books are so small and easy to read. However, they are right on target with the typical behavior of the specific age.

The book for 8 year olds has already helped improve our relationship and calmed us both down. Now I know that some of the behaviors she exhibits is typical of the age and not necessarily due to her tumor or its location; that has been a great relief. We also discovered that certain things I do sets her off; so I changed the way I ask her to do things and it is working... it's a miracle I tell you. You must try these books... I think they have them well into teen years.

How old are the girls now? just email me & I will order the appropriate ages for the girls. I am scared of the eye comment Kristin, please keep us posted. I also hope the therapist works out. When is your next CHOP appointment? I like to stop by with some Olives for lunch.

Enjoy this beautiful weather & hope things have slowed down a little for Dave.

PS: We are walking for the G force this fall!

Miss you. Keep hope alive in your heart.

Banu www.endlesshope.org
Cherry Hill, NJ 08003 - Sunday, April 20, 2008 6:25 PM CDT

Howdy Kristin, and Genna, and Rosie, and Andrew, and Dave!!

I'm rooting for David Cook, too!! I think Archuleta has gotten a bit boring. The kid's a genius singer, but ... yea.

Your life is full, indeed. Those kids sound like they keep you busy busy busy. But I know you cherish every moment (YIKES, and all!! lol)

Wish we lived closer, Kristin ... I'd LOVE to have a thousand-year-long cup of coffee with ya! :)

Good luck at your presentation. Fourth graders can be a tough crowd to please. :) But, I know you'll do well.

I wish you all a peaceful Sunday and a happy week.

~Heide
m/o ^Jessica^; forever 17 -
http://caringbridge.org/visit/jessicarandall
TEAM UNITE! Help Conquer Childhood Cancer!
Heide Randall
- Sunday, April 20, 2008 12:07 AM CDT

says take time for FUN!!!

I do hope you will forgive my lack of signing in lately, it has not been for lack of reading about you all, nor for many prayers being offered up for you! I just can't seem to keep up on days the children have school. I do know you realize that and yet, I want you to have a message from me much more often than I have been able to lately!

Praying that you are all having a lovely weekend and that EVERYONE is feeling well!!

Much Love and many Blessings,
Judy and Lisa
Charlotte, NC
- Sunday, April 20, 2008 7:42 AM CDT

hi my friend. today was great. we still didn't talk long enough. now I'm reading your post and realizing how much I didn't talk about with you... can we have about a thousand hours next time? anyway - I feel much more sane, and much more myself after this morning's "coffee". Thank you for still making time for old friends.
Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Thursday, April 17, 2008 11:16 PM CDT

I am so excited to hear about the new counselor- I will say many prayers that everything works out for the best! Have a great weekend.
Angie Gubser <queenie_adb@yahoo.com>
TX - Thursday, April 17, 2008 7:33 PM CDT

Kristin i am so happy this lady called you back
and was able to give Miss Gina an appointment in two weeks.
I will be storming Heaven with special prayers for sweet Gina..
Trish/Angel_Wings <Boyerangeltrish@aol.com>
Kingston, TN USA - Thursday, April 17, 2008 4:15 PM CDT

Kristin, it's been one tough day after another lately. . .but sooooo thankful that the right person called you back, and that you only have to wait 2 weeks. That is great!! :) Hoping for brighter days ahead.

Happy Baseball, and Spring, and all good things bright & shiny! Convinced the sunshine & rainbows are on their way.

xoxoxo~
Melissa & Katsie Rane
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Thursday, April 17, 2008 8:33 AM CDT

Woohoo - great news. All good things come to those who wait - maybe thats what the wait was for - the right person. Hope its just the recipe for G. Hope the coffee was wonderful.
Diane
- Thursday, April 17, 2008 5:35 AM CDT

The counsellor sounds great, I hope Genna likes her and it helps. Your tree sounds very impressive. Would gardening be a fun outdoor activity? I gave my children bits of garden to look after, but they didn't really make much effort, apart from trying to sell me things that grew there almost without their help - like Rose's rhubarb which was very expensive .... James and I did well with sunflowers when he was ill though. Did the tricycle not work out? Maybe when the weather is better?

It's very quiet here, Anna's away in Italy, revising for next week's exams I hope, and Rose is out playing the violin.

Thank you for checking on us. I hope the demoralisation lifts. We've finally had some spring weather here.

Love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Wednesday, April 16, 2008 4:20 PM CDT

I hate to hear demoralizing though understand your frustration. Chin up - sounds like "fun" in the mud.
Congrats to the girls on their reports. I'm with Aunty Rita who cares about penmanship!! Go Rosie
Diane
- Wednesday, April 16, 2008 5:33 AM CDT

Dear Kristin,

Congratulations to both the girls for their terrific report cards. Penmanship in kindergarten??

I'm sorry about all your frustrations with Genna. I don't know how you can get on top of any of this when the dam tumor is causing all the problems. I hope you hear from that counselor soon. Sometimes our kids listen to other people better then they do to their parents.

Your tree sounds beautiful! Enjoy looking at it.

Thanks for remembering Timmy's angel anniversary. It means so much.

Hugs...Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Tuesday, April 15, 2008 8:41 PM CDT

Attention Prayer Warriors::

The Prayer Warriors at Angel_Wings
will be having a Prayer Vigil Saturday
April 19th. between 8-9 pm EST for
and all the children and adults on our
prayer list and our Angel Families.
Please join us in prayer for these
families..

Angel_Wings

Etta <grandmaettas@aol.com>
- Tuesday, April 15, 2008 5:12 AM CDT

Check regularly and wanted to be the special visitor but see I missed out - oh well. Love checking anyway.
Take care
Diane
- Monday, April 14, 2008 2:22 AM CDT

Hi Kristen, we use melatonin for Sam, it helps her a bit. Her diabetes insipidus wakes her up a lot at night, we're working on tweaking her medications to try and fix that but in the meantime, the melatonin does help her.
Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean yahoo PBT <Scanmom@hotmail.com>
Wyandotte, MI - Sunday, April 13, 2008 7:11 PM CDT

Hello, stopping by to see how you are doing. Keeping you in my daily prayers.
Elaine/Angel_Wings <esahttuck1@cox.net>
- Sunday, April 13, 2008 6:25 PM CDT

Awww...I was 100,001! Way to go on the swimming Miss G and Rosie and Andrew and his B-ball. It sounds like your summer is going to be very full of activities. Carr has been invited to a two week summer school at the Indiana School for the Blind. We are talking it over here at home and I am going to talk to the school for more info. Very nerve-wracking, but maybe something that would boost the self-confidence level. Hope your weekend is a relaxing one (but not holding my breath):)
Blessings, Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN - Saturday, April 12, 2008 5:44 PM CDT

Just stopping by to say Hi. Have fun at the ball game. Take care!
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Thursday, April 10, 2008 6:13 PM CDT

Mike was at that Devils game too with my brothers! (Though for my brothers it was a Rangers game...)
And btw, I am Very Impressed that Splashy is still alive.
Just wanted to chime in and let yall know I'm still checking up on you. I think people need to MTOB, and you should have heard "Uncle Mike" when I got Him started... just by way of saying you have real support in your Rightness.
Was freezing my behind off at a lacrosse game Tuesday and I swear I had visions of A in high school whipping down the field... anyway.
Hope you find good solutions to food placement and sleep!
C
Aunt Christine <mithril1971@gmail.com>
Hillsborough, NJ USA - Wednesday, April 9, 2008 10:25 PM CDT

Hi Genna,

Just checking in to say hello.

Did you know that I know your 4th grade English teacher and she says you are a very good student. I think she gives a lot of homework though--- oh well, before you know it school will be out and no more homework.

Do you have any "goodies" left in your Easter basket? My stuff is long gone. I even had to steal ( I mean borrow) some of my son Pete's chocolate bunny. He got a solid chocolate rabbit and mine was "hollow". If you have anything left in your basket, that you don't want, you can send it to me and I'll distribute it to the "needy".
Well, all this talk of chocolate candy is making me hungry, so I think I'd better check what's in the ice box (I mean refrigerator).

We pray for you and your family almost every day.
Love,

The Touhills
Dave Touhill <davetouhill@peopleofhope.net>
Warren, NJ USA - Wednesday, April 9, 2008 7:49 AM CDT

all the best to flippy. My son had fish dramas when he bought them as a gift for the girlfriend. Happens all over the world!!!!!!
Love and prayers
Diane <dikerno@hotmail.com>
- Tuesday, April 8, 2008 5:15 AM CDT

Hi Kristen,

You really got me laughing tonight. I wish..Oh how I WISH I could have seen what you deleted while on your homeopathic rant. I totally agree with you how people in the BT world are so much more respectful. And I am all for going the natural route whenever possible. BUT I cannot tell you how many 'outside' people approached us with remedies, potions, pills that were a 'cure'. And when we declined (politely mind you) we were told, what can it hurt? Well, the answer is a lot. Hope I didn't offend, I guess this isn't the place for it. But you go girl!

I hope Andrew had a great game. When my boys would pitch I felt like I couldn't breathe. So much pressure! Imagine how they feel. It builds character and teaches us moms patience. Of course a comment or two to the umpire was always a given. When WILL they be consistent with their strike zone?

Here's to a sleep filled night for your family.
Sending you well wishes on Genna's SST meeting.

Love, Lisa
Angel Jacob's mom
Lisa Field <efield5@yahoo.com>
West Covina, CA - Monday, April 7, 2008 11:16 PM CDT

Hi Everyone,

Thinking of you all tonight and always.

The sleep issues with Genna really stink. I hope you will be able to find a natural solution. Genna needs her sleep and so do you.

You make me laugh Kristin. Welcome to Flippy #2. I also hope he fares better then the Flippy #1.

Glad Andrew has his baseball now, and WOW to the Devils game!

Sorry I don't write much but please know that I always check in.

Hope it warms up soon...we really need some sunshine!

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Monday, April 7, 2008 9:02 PM CDT

Sounds like an exciting week at your house. I don't like the helicoptor story, either. We live approx. two blocks from our town's hospital and when Lifeline flies in to land it makes it landing turn right over our house. Carly and I always say a quick prayer for whoever is needing that ride. Way to go, Miss G and mom. I don't know that I would have been able to think that quick on Warner Bro. I was more the Flintstones and Jetsons:) We had a wonderful time on our trip to TN. Just way too short which is always the case. Have a great week.
Hugs & Blessings,
Val Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN - Sunday, April 6, 2008 3:07 PM CDT

Kristin, Genna, Rosie ... It's me ... the neglectful CB visitor!! lol Kristin, what you wrote to me was EXACTLY right!! And you sounded like my brain does when it tries to figure it all out!!! (does that even make SENSE!!) :)

GOTTA love the ice-cream cake impulse buy!! :)

Genna, you are a TRIP. I love that you keep calling in for those radio contests!! And, you keep WINNING!!!! Very cool. And, Kristin, you made me feel like I was there. :)

I can so relate to the having to "tame" the kids' rooms before they can clean it ... **sigh**...

Well, Cams ... I am going to come up with a system somehow so that I can get back over here more regularly. I love reading your updates, and when I finally do get in here I smack myself for days realizing all I've missed.

I hope you all have a nice Sunday.

~Heide
m/o ^Jessica^; forever 17 -
http://caringbridge.org/visit/jessicarandall
TEAM UNITE! Help Conquer Childhood Cancer!
Heide
Marshall, VA USA - Sunday, April 6, 2008 7:27 AM CDT

Thinking of you so often, but up to my neck with issues. The girls look so pretty and what a handsome young man. We will get through this!!! Thanks so much for praying for us. I'm so glad everything is stable in your world. Take care and loads of Love to all of you

HUGS
Ori <harley00@nep.net>
Kingsley, PA - Friday, April 4, 2008 7:24 AM CDT

Great work Genna (good on Mum for knowing the answers) I would never be game enough to ring up.
Glad that things are happy (except for the police drama)
Love and prayers
Diane
- Thursday, April 3, 2008 9:04 PM CDT

I've been thinking about you since your message in the guestbook- We will Have to spend some quality time this summer- We have So much to talk about-
I can't wait !!!!
Take care- Weird med-vac experience, that- Can't believe there is much that freaks out us bt moms- but it is always the thing that catches you off guard that hits the hardest, I think -
take care- eat chocolate- it'll be better-
and yes, I am a Huge fan of getting the endorphins going Every day -somehow !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Thursday, April 3, 2008 8:49 PM CDT

Stable scans are the best. . .and you're right, the day after scans is incredibly deflating. . .I think it's the let down after a week of being neurotic and on the verge of absolute insanity, finding your way back again is somewhat difficult. We love you guys, glad things are good and that G's pituitary is NOT squished!!!

Have only eaten 5 Cadbury Eggs from the bag I bought 2 weeks before Easter. . .What is wrong with me?? I'm just so food funky right now. I don't know.

xoxoxo~
Melissa
www.caringbridge.org/tx/katsierane
Melissa <melissa.brock@blockbuster.com>
TX - Wednesday, April 2, 2008 2:43 PM CDT

Hi Cams!! As always stalking your site. Love seeing the great photos.
Diane
- Wednesday, April 2, 2008 7:06 AM CDT

Stable is good. Really good, actually.

I was thinking of you and I checked in briefly to see how things went but didn't comment.

Love the new pictures.

I'm up to my neck in stuff, when I settle down a bit maybe I'll write about it. Maybe...

Love to all,
Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Wednesday, April 2, 2008 0:56 AM CDT

Dear Genna, Kristin and the rest of the bunch,
Thank you so much for the food for Emmmanuel Cancer. Genna was so proud to give me the bag, which I first thought was a lot of bread from Panera for me to have with my coffee (perfect for p.m. knitting). Then she showed me the contents and the pleasure and maturity that she displayed revealed her understanding of our ability to give to others, even in light of our own issues.

Thanks for thinking of one of the many organizations that I have become involved in.
Sandra is still here with us.

Marta
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Tuesday, April 1, 2008 11:15 PM CDT

I am so glad that your test results were good. I really enjoy reading your updates. Praying that your will have a good week.
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Tuesday, April 1, 2008 5:37 AM CDT

Praise the Lord! Stable! Stable! Stable! One of the nicest words BT parents can hear. CB has been acting very funny the past few days. Either kicked me out of sites or very slooow loading. Anyway, very glad I got to check in before we leave for Springbreak very early in the morning. Have a wonderful week.
Blessings, Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN - Sunday, March 30, 2008 8:19 AM CDT

Kristin:
I thought of you last night, as I was forced to valet park my van at a hotel......the roadtrips are so unkind to my vehicle, yet, I could find NO parking for blocks, and it was dark.....I'm just glad I didn't have to personally hand the key over to the person that was going to park it!!! Thanks for stopping by our site - I just don't have lots to update with these days.
Kelly
SK Canada - Saturday, March 29, 2008 10:00 PM CDT

Ahhh, STABLE- what a Beautiful, Gorgeous, Lovely word in our world !!!! We are very, very Happy for you and yours !!! And it Even sounds like the day was reasonable- Even Better !!!!! Please tell Genna that I think she is Incredibly BRAVE !!!! (and so are you, but you don't have to tell her that)-
Please do celebrate in a BIG and Chocolatey way !!!
love, alice and lexie
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Friday, March 28, 2008 9:08 PM CDT

Stable is wonderful and hopeful news,

I love the new pictures - the snow ones were beautiful too.

love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Friday, March 28, 2008 4:57 PM CDT

HOOOORAY!!!!!!!! Wonderful news!!!!! I'm so glad things are still stable.
Prayers & BIG SMILES, Anne (grammy to Charlotte)

Anne Taylor <AET1955@aol.com>
Philadelphia, PA USA - Friday, March 28, 2008 11:06 AM CDT

So relieved at the results of "stable"!! I was thinking of you all day long :)

Enjoy your weekend now that you can relax a bit!
Amanda Holman - Joshua's mom <aholman515@gmail.com>
Coopersville, Mi USA - Friday, March 28, 2008 10:08 AM CDT

so relieved. worried all day. and prayed. and near panicked when I didn't get a text :-) no guilt trip, just used to that "stable" on my phone... so am thrilled that you did, in fact (and in spite of it all) get the same good news.
get some Rest!
C
Aunt Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Thursday, March 27, 2008 11:02 PM CDT

Dear Kristin,

Yes...Yes...Yes. Genna and your family will continue to bring hope to so many.

The renovations in Oncology at CHOP sound awesome, and so very needed.

Happy Spring...

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Thursday, March 27, 2008 10:26 PM CDT

WOOOO HOOOO!!! I'm so relieved for you guys! Tell G I'm super proud of how well she did with the IV and everything too!

Love,
Sherry-Lee
www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <momtocharlotte@aol.com>
Broomall, PA USA - Thursday, March 27, 2008 10:15 PM CDT

Kristin......oh my.... YES JESUS!!! Stable...we'll take it!
Tearfully grateful for you and the results...Deedy,

Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora)
Chardon, OH USA - Thursday, March 27, 2008 9:42 PM CDT

Dear Kristen,
I haven't written for a while...but wanted to say YEAH! to Genna's great results today. What a huge relief. I am so amazed at Genna's ability to go to sleep before the sleepy medicine! Those machines are so loud! It is definitely a flaw in the design if you ask me. Jacob used to say he would try and pretend he was playing a video game to the sounds. Please tell Genna that I am so proud of her. It sounds like she did just great today.

You are doing a spectacular job yourself mom. I hope you have some energy left to bask in the goodness tonight. Life is good today.

God Bless you and your family,
Love, Lisa
Jacob's mom...forever 10
Lisa Field <efield5@yahoo.com>
West Covina, CA - Thursday, March 27, 2008 9:10 PM CDT

Oh, I'm THRILLED, what can I say!

R-e-l-i-e-v-e-d too! Deep breathe, sigh, and oh my!!!

Give that precious girl a big hug from us.

Now...we're next, April 21st...yikes!

Love ya'll,

Susan
Jordan's Site <Susan2956@yahoo.com>
Jumping, dancing and going crazy down here.................................., - Thursday, March 27, 2008 9:00 PM CDT

Woo Hoo - we prayed for that and its so great that its happened.
Love and prayers
Diane
- Thursday, March 27, 2008 8:55 PM CDT

Dear Kristin and the rest of the bunch,
I could literally feel your nerves rattling on this side of the valley. I could even feel them when we sang the
"tremble" hymn, which now will never be the same again. I know what the pre-MRI blues are, I wish the parents could get some anesthetic for that time, I wish, I wish, I wish...
I'm grateful that you will have "normal" again in your life, at least before the next scan. So grateful.
Mark said he is running now, not for Sandra, but for the Genna's and Rosie's out there. He will be going to San Diego for CTF in June.

Marta

www.caringbridge.org/visit/sandy
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Thursday, March 27, 2008 8:49 PM CDT

Woo Hoo!
I am between soccer and concert tonight....but I had to check. I tried to send an email last night and it wasn't working so I'll send more tonight!

Thank God and more Woo Hoo!
Love,
Me
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, March 27, 2008 7:30 PM CDT

WOO HOO! Great news! 3:45am????? Ugh.

Kelly
SK Canada - Thursday, March 27, 2008 7:25 PM CDT

***PHEW***

A huge sigh of relief for you! Yay! =)

www.HadleyFox.com
Angela Fox <FoxiFamily@yahoo.ciom>
Puyallup, Wa USA - Thursday, March 27, 2008 5:46 PM CDT

Praying hard for miracles today...=)

Hadley's Mama
www.HadleyFox.com
Angela Fox <foxifamily@yahoo.com>
Puyallup, Wa USA - Thursday, March 27, 2008 11:50 AM CDT

Kristin,

Hope today's scan goes well and doesn't show any new YIKES :) Just wanted to drop a line, I'm thinkin bout you and Genna today, praying for good results and a short wait to hear them!

Jess, Andrew's Mom
www.caringbridge.org/visit/andrewcruise
Jess <rini_jessica@yahoo.com>
- Thursday, March 27, 2008 9:15 AM CDT

Praying for a great result!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1
Diane
- Thursday, March 27, 2008 6:46 AM CDT

Praying for you all that the next few days go well...good scans and great results!
Tara, Lon, Preston & Ethan (www.caringbridge.org/visit/preston)
mi 48340 - Wednesday, March 26, 2008 9:21 PM CDT

Dear Kristin,

It's late and I know you won't see this tonight. I am home and have a computer again. I will be thinking of you so much tomorrow and waiting to hear from you.

Love, Susan
www.ttpf.org

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Wednesday, March 26, 2008 9:20 PM CDT

Hi Kristin and Genna!

Praying for scans tomorrow!! Thinking of you as we watch American Idol tonight - we think we're David Cook fans? We thought his "Billie Jean" last night was awesome!!

Can you believe we all got sick AGAIN during my vacation - sigh, never fails!! We, also, will be stalking your page tomorrow!

Love,
Melina and the crew <melina_mayo@yahoo.com>
New Castle, VA - Wednesday, March 26, 2008 8:18 PM CDT

You are SO in our prayers tomorrow !!! And I do SO get it about the hospital people knowing you TOO well !!! The last Day Surgery Lexie had was to get a new port- When we walked into Day Surgery, the nurses looked at her and said "My, she's grown !!"- That's Not good- when the outpatient dept. knows you that well -
So, get through the day tomorrow- Eat Lots of chocolate when you need it , and we'll be waiting to hear-
love, alice and lexie
www.caringbridge.org/visit/lexiewilliams
ps- I Love your ramblings !!!! Lots !!!
alice williams <awilgent@comcast.net>
lakeville, ma. - Wednesday, March 26, 2008 7:45 PM CDT

You are in our prayers every night, but you can bet we will be praying all day tomorrow, and then I will be stalking your page waiting for the update!

I also have to tell you, I just discovered the wonder of the Reese's eggs yesterday, OMG they should be illegal.

With love and prayer,

Sherry-Lee & Crew
www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <momtocharlotte@aol.com>
Broomall, PA USA - Wednesday, March 26, 2008 6:09 PM CDT

Praying for awesome scan results tomorrow!!! We scan again a week from Friday. Oy. I SO hear you on the IKEA run. My husband doesn't seem to understand that it doesn't matter if we "need" more furniture...or more storage accessories/tubs. It's THERAPY. It's more than retail therapy...it's retail therapy, busy therapy, control therapy...all in one. Isn't Ikea miraculous?

Ok, now I sound creepy.

Our thoughts and prayers are with you tonight and tomorrow. Hang in C's. Love to you all!

www.HadleyFox.com
Angela <FoxiFamily@yahoo.com>
Puyallup, WA USA - Wednesday, March 26, 2008 2:04 PM CDT

Kristin,
Praying really really hard for a good clean stable scan. I usually wake up around 4 a.m. so tomorrow morning know one of your many prayer warriors will be sending prayers up and good thoughts your way.
P.S. I haven't posted on Carly's CB site yet, but eye appt. was stable. Visual field was even a little bit better than last visit. We will take even those "little bits".
Blessings, Val
Carly's Mom
Blessings, Val
Val Hiers <vhiers1@yahoo.com>
Peru, IN US - Wednesday, March 26, 2008 1:26 PM CDT

Kristin...oh, the food....all Nora ever wants to do is bake cookies and fill her personal containers she keeps on her desk...I've gone from actually baking, to slice and bake and sprinkles on top, to...dear Lord, forgive me...this a.m. I took some packaged animal cookies...made a lot of ruckus in the kitchen, 'baked' them at 300 for a brief minute, and covered them with leftover yellow icing and sprinkles!! Mercy!!!! I know, but some don't 'get-it'...it's all I can do to do that...BUT today and tomorrow I will be praying for you and Genna......making aprons today...would you like one to wear you when bake(or fake bake) chocolate goodies?
Deedy <deidreun@yahoo.com>
Chardon, OH USA - Wednesday, March 26, 2008 8:46 AM CDT

"Our Promise To You"
We may not hit your site each day
and days can turn to weeks...
But know that you are in our hearts
and of you to God we speak.
For you, Dear ones are on our list
of prayers we say each day
For strength to fill your weary heart
for grace to fill your day.
for light to fill your darkest hour
for peace throughout the night
Please know that we are standing by
through each step of your fight.
And should you need a special prayer
please come to us our friend
for Angel Wings will pray with love
and love will never end..
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Wednesday, March 26, 2008 6:49 AM CDT

Early prayers from down under as usual. Glad the stop watch is getting pulled out and helping motivation. The pedometer may help - count and time - maybe just add more angst. It must be scary but know that others are trying to lighten your load - though thats not really possible but uplifting hopefully.
Diane
- Wednesday, March 26, 2008 5:26 AM CDT

I just have to say, you will update Thursday night or call or something! We have soccer practice and a spring concert.....but I will be checking. My late is much later than yours, you don't want my call in the night asking you how things were!

Take care!
Reca
PS Would G like a pedometer? It might be fun if she could count her steps.
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, March 25, 2008 10:35 PM CDT

I hope you survived your first day home with the kids....hopefully you will have some nice weather! It has been so cold here, I'm hoping that changes before next week when we're off.

I LOVE the new pictures! You just have the most adorable kids!

Thinking about you so much this week, remember all good! It will be all good!

Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Monday, March 24, 2008 11:13 PM CDT

Hi Genna,
I will be praying extra prayers for you on Thursday!!!
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Monday, March 24, 2008 5:42 PM CDT

Love the new photos - Happy, Smiling children - what a joy
Diane <dikerno@hotmail.com>
- Monday, March 24, 2008 2:33 PM CDT

Hi and Happy Easter- We Really should talk at some point- Lexie has a similar version of that lack of Off switch- It is hard for her sometimes !!!
We are also doing the Grateful, Yikes, Sad for our friends thing this holiday !!! What are you going to do ?? That's the Brain Tumor world, which I definitely do not remember signing up for, although it does have it's share of gifts !!!!
Take care- We'll be waiting with bated breath to hear about Genna's scan-
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Sunday, March 23, 2008 2:47 PM CDT

May You feel all of God's Blessings on this Miraculous day!

Love and Blessings,
Pete, Judy, Christian, David, Rachel and Lisa
NC
- Sunday, March 23, 2008 0:36 AM CDT

Hope your day is special!

Praying and praying some more for scan day!

Love you guys,

Susan
Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Saturday, March 22, 2008 10:54 PM CDT

Hi Kristin, you made me want to go to church. Ever since my mom died (15 years ago, seems like a long time ago but she's my mom) I have had a really hard time going to church. It makes me cry. I can't sing, pray out loud anything. I can't even imagine going now, with Sam being sick. Doesn't that sound dumb? I just don't know if I can handle it. I should shut up and try it. Next Sunday, I'll let you know how it goes....I really miss church...Thank you for the reminder.
Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean yahoo PBT <Scanmom@hotmail.com>
Wyandotte, MI - Saturday, March 22, 2008 7:55 PM CDT

Dear Kristin,

Happy Easter to your wonderful family. I hope you all have a very special day together.

I understand all your anguish, and all your what if's. You are entitled to all of them. Stop being so hard on yourself. You are doing everything and more for your girls, and so many other families living with this dreaded disease.

I am spending Easter in Florida with Jason. It is so good to be in a warmer climate (hopefully it will get warmer, it's been raining all day today).

My thoughts are with you as scan day approaches. As always, I say stable or better and I have always been right.

Happy Easter!
Love From Florida, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Saturday, March 22, 2008 6:31 PM CDT

hello to all brave, strong, perseverant Camiolo family. Thank you for your constant support. We are praying for you and hope the Holy Spirit fills you with some of that peace that surpasses all understanding. Enjoy your Easter.
Much love,
Karen
Karen Shanahan
- Saturday, March 22, 2008 11:40 AM CDT

Dear Kristin,
Just want you to know I am thinking about you, you know I understand....Drew and G have some differences, but they are so alike. I need to just email you.....I saw Cadbury eggs this morning and thought of you! :0)
Take care, next week will be all good!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Friday, March 21, 2008 8:34 PM CDT

Easter Joy

Jesus came to earth,
To show us how to live,
How to put others first,
How to love and how to give.

Then He set about His work,
That God sent Him to do;
He took our punishment on Himself;
He made us clean and new.

He could have saved Himself,
Calling angels from above,
But He chose to pay our price for sin;
He paid it out of love.

Our Lord died on Good Friday,
But the cross did not destroy
His resurrection on Easter morn
That fills our hearts with joy.

Now we know our earthly death,
Like His, is just a rest.
We'll be forever with Him
In heaven, where life is best.

So we live our lives for Jesus,
Think of Him in all we do.
Thank you Savior; Thank you Lord.
Help us love like you!

By Joanna Fuchs

I so appreciate you and all of your kind words and prayers that you give to us. You are certainly a dear person to us and I am so blessed God has brought you and your kind family in to our lives!

I can't believe how long it has been since I signed in, 'cause I read a LOT!

May you feel God's eternal Blessings on this beautiful and Holy Day!

Love and Blessings,
Judy, Pete, Christian,David, Rachel and Lisa

Charlotte, NC
- Friday, March 21, 2008 5:28 PM CDT

THIS DAY'S GREATEST GIFTS
We can't change the past…
But we can gather up
It's lessons and move on,
Stronger and wiser.
We can't control the future…
But we can send our dreams
Ahead of us
To help prepare the way.
We can live each moment…
Heart and soul,
And cherish this day's
Greatest gift…
The gift of now.
May peace with the past
And faith in the future,
Gently guide you through each
Precious moment of Today.
I pray you have a Blessed Easter

MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Friday, March 21, 2008 11:04 AM CDT

Hi Cams!

I'm sorry I haven't posted....I did check and have been thinking about you so much. I am PMSing for you, even though I know it will be all good! We got a thing in the mail today about the new Great Wolf Lodge that is opening in Washington. It looks way too fun, I am hoping we can check it out this summer. I think it is about 4 hours from here.
I hope you have a wonderful, peaceful Easter!
Love,
Reca
www.caringbridge.org/visit/andrewt
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, March 20, 2008 10:52 PM CDT

hey Genna- I am Shocked, horrified and disgusted that Amanda got kicked off !!! WRONG, WRONG, WRONG !!!!
Try to adjust- I always want to quit watching when they do this dumb stuff, but i never do !!!
hang in there- there's always Carly- she's good, no???
love to you from cold and rainy Ma. !!! First day of spring - Right-
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams

alice williams <awilgent@comcast.net>
lakeville, ma. - Thursday, March 20, 2008 9:43 PM CDT

Hey Genna,

Devon wants you to know that she is extremely upset and shares your sadness in the fact that both of your favorite "rock & roll nurse" Amanda got voted off last night.

After much kicking, screaming and shouting in disbelief... Devon has moved on to Jason the boy with dread-locks. How about you? She wants to know if you have a new favorite.

Have a happy Easter! Hope the Easter Bunny is good to all three of you this year.

Banu - writing for Devon @ www.endlesshope.org
Cherry Hill, NJ - Thursday, March 20, 2008 7:07 PM CDT

Stopping by to let you know I'm over here praying for Scan day...

Keep holding on my friend!

Love you,

Susan
Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Thursday, March 20, 2008 10:01 AM CDT

Popping in early to wish you all a Blessed Easter. We are off on a road trip with our camper. Hope the Easter Bunny finds you all and leaves lots of chocolate. Make sure you kids hide your stash from Mum.
Diane
Australia, - Wednesday, March 19, 2008 2:22 PM CDT

Dear Kristin and the rest of the gang,
O.K., I thought you were singing "humble, humble, humble,", or "stumble, stumble, stumble," and because I was quite a bit shaky that day, I didn't know if it was you or me. At least we didn't "crumble, crumble, crumble," but thanks for making me feel like a fifth grader again, trying to stop the infectious giggling from coming. Just knowing that your family would have to witness it, since they were sitting in the front row, what would they think? Well, hopefully, we trembled into the right notes, and it wasn't too obvious. I think it was a Sandra affect -- she loved to joke around.
Anyway, I tried to hold it in -- I didn't want Suzanne to look too worried.
Thanks for the laughter.

By the way, were the palm trees moving, or was it just me?

Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Tuesday, March 18, 2008 12:42 AM CDT

This is my first time to this site. I am a grieving mom of Brandie. Brandie passed away in July 2007 from MPNST. Brandie never gave up. After several surgries, a round of raiation, and three rounds of chemo she left me to remember how wonderful and brave she was. Brandie was so brave that she was a Humanities Gifts donor (she donated her body for scientific study.) I hope each and every one of you who read this will never feel the pain that I have. Never give up, as there will be a cure.
Best wishes to all.
Barbara Schramm
Fombell, Pa USA - Monday, March 17, 2008 7:52 PM CDT

Kristin.....checked in to check on Genna's scan date...at least it's not this week. We are hanging on. Family coming for Easter(and some for the weekend!)...husband 'off' this week, so we're trying to share the workaround here that sometimes just gets put off... and the caregiving, which never gets put off. Nora's all about the food, and she is tired, and a bit clinging...vitals are fair-good-to- ok(that is for a hospice patient on meds, but most cruddy for 'real people'!! You can count on me to pray for the scans...but Hope only on Him, you can count on the Lord, always and forever/ (That is what Nora and I say, "I loveyou...always and forever...)
Oh...I remember singing the -tremble-tremble-tremble line in church choir years ago...oh, my!!!!
'Friday's here, but Sunday's coming!'AMEN..
Deedy,
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora)
Chardon, OH USA - Monday, March 17, 2008 6:38 PM CDT

The way to get through Holy Week is to sing Godspell songs really loudly...better yet, to sing while dressed like a Flower Child or Mae West. It's an amazing mix of not feeling too guilty because hey, you're singing songs about Jesus, all the while feeling like one step over the line and you'd be in Hair, the musical, instead. There's a very fine line between Day by Day and Let the Sun Shine In :-)
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Monday, March 17, 2008 5:59 PM CDT

Congratultions to Andrew on the Championship win. How exciting - nothing like the thrill of coming from behind. Good distraction for Mum at this time.
I'll have to get a real early start on scan day!!!
Take care - love and prayers
Diane
- Sunday, March 16, 2008 2:21 PM CDT

Attention Prayer Warriors:

The Prayer Warriors at Angel_Wings will
be having a Prayer Vigil March 19th. between
the hours of 8-9 pm.EST. for
and all the children and adults on our Prayer
List and our Angel Families.Please join us
in prayer for these families..

Angel_Wings

Etta/Angel_Wings <grandmaettas@aol.com>
- Saturday, March 15, 2008 11:27 AM CDT

Thanks for your words on Lexie's guestbook- Soemtimes it is just so immensely helpful to know that there are more than just me out there feeling the way I feel !!!!
You are a fabulous writer by the way !!!!
I LOVE your updates !!!!
Take care !!!
love, alice
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Thursday, March 13, 2008 9:11 PM CDT

Thinking of you as you head into scan time. I can relate to your "deer-in-the-headlights" feeling about being in the spotlight. We've done a few speaking engagements for NF and I still get the pit in my stomach just thinking about it!
Ann Jongsma <annjongsma@yahoo.com>
- Thursday, March 13, 2008 8:54 AM CDT

Hello from Real Levi's family!

Wow - this guy gets around!! Can't wait to hear about his adventures.

We have had sickness upon sickness in our house - Kayzilla has been very, very sick this week - may need to go for some IV fluids if things don't improve soon - ugh!

Levi's final card count is close to 850! And tell Miss Genna, yes, he did receive cards from every state and even 10 countries!! Canada, Australia, UK, Ireland,
Denmark, Italy, Germany, Korea, Philipines, and Maylaysa!! Here's a link to an article in our local paper - http://www.ourvalley.org/news.php?viewStory=2342

Have a wonderful night.

Melina and fam <melina_mayo@yahoo.com>
New Castle, VA - Wednesday, March 12, 2008 8:47 PM CDT

Andrew- congrats on the 3 pointer! AND on finishing your project. Sounds like you're having an awesome week. Bet those bball kids are still wondering how you did it...and I hope your teacher is thinking the same thing about your page - I've seen some of those for real in Ireland and Italy, and they're pretty amazing too!
Aunt Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Tuesday, March 11, 2008 11:19 PM CDT

It sounds like everyone had a good time at the fund raiser.
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Monday, March 10, 2008 5:40 PM CDT

Hi Genna and Rosie and everyone,

It's been awhile since I've dropped you a note, so I thought I better get going. Was that a great fundraiser/coffee house/ entertainment night... Everyone was great, especially that one song you sang... I think it was about _________, oops, better not say it. You all were very good. I did notice that somehow my songs never made it to the night. You know your favorite song " Here we go, oh here we go, we're off to Koinonia", and of course " Just because I'm a genius". Maybe they thought that if I sang those songs the other performers would be intimidated. Anyway it was a great night and you all did wonderfully well.
Well, Adios Amoeba. I better get back to work before I get fired , or get a promotion. Keep smiling and remember that Jesus loves you.
Love, The Touhill Family

David Touhill <davetouhill@peopleofhope.net>
Warren, NJ USA - Monday, March 10, 2008 2:05 PM CDT

Hi Guys!
WOOOOOOOOOW! I am so impressed! ~$8,000 that is fantastic! God bless you for putting all that energy & effort into making this such a success. All our families & kids appreciate every bit of it. We thank YOU! and hope that our event will be as successful as yours come April.

Hey Kristin, I know that we were at club CHOP recently & Sean decided to buy a new and return our new home computer system causing me to miss almost two weeks of communication...but we need to email and talk. What scan did I miss? I know Genna's is coming up in 3 weeks and the jitters have started but did I miss a recent one Rosie had? Anyway I'll send you an email.

I just read your post on endlesshope and I swear our kids must be connected. Devon screamed when the wild "nurse" made it to the top 12 on A-Idol saying "Daddy do you know my friend Genna likes her too... I wonder if she voted for her?". My favorite is the little Philippino girl... I am sure you can guess why... its the size that I relate to :); we are both barely 5' tall I think.

Anyway, we are scheduled for CHOP for the next several weeks and hopefully (but not wishfully) we will see you guys soon.

How was Great Wolf Lodge? I hear its a great place... oh we have so much to catch up on.

Can't wait to talk to you soon.
Banu www.endlesshope.org <banu@endlesshope.org>
Cherry Hill , NJ - Saturday, March 8, 2008 8:07 PM CST

Hey Kristen,

Wow, what a night!! Thanks for all your hard work. Sounded so special. I'll look forward to the pictures.

I was there "in spirit".

Blessings to you and your whole family!

Susan
Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Thursday, March 6, 2008 8:45 PM CST

Your coffeehouse sounds like fun, and profitable, and for a great cause.

I wish we lived closer, I'd have been there with Bells on.
Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Thursday, March 6, 2008 1:44 AM CST

Kristen you are absolutely amazing as is your family. It was wonderful to hear Genna's underwear song...sorry I missed Rosie's C is for Cookie....I never met Dave but got to see him in action....and yes Andrew was the welcoming committee...
Such hard work, surrounded by people who deeply care.....
and entertained by the best!...and will be calling for some of your cookie recipes.....
So when is your next event? I surely do not want to miss it.....watching your children gave me a blessing.....
May your family now rest and relax for He says...
JOB WELL DONE! "HE" ENJOYED EVERY MINUTE OF IT.
teresa t beyer
friend of Marta's

Teresa T Beyer <teresatbeyer@yahoo.com>
Millington, nj USA - Tuesday, March 4, 2008 7:20 AM CST

Thinking of you and praying for you everyday.

If we ask anything according to his will, he hear us. 1 John 5:14

www.caringbridge.org/visit/johnshattuck

www.caringbridge.org/visit/bettywilliams

Elaine/Angel_Wings <eshattuck1@cox.net>
- Monday, March 3, 2008 5:16 PM CST

Wow~! What a great coffeehouse happening...thankyou SO much for the awareness you are providing for NF1....Our children thank you, I thank you...Someday I just may show up to one...Loved the snow 'princesses'...sweet as can be.....love you , Kristin...enjoy Great Wolf Lodge...we went last May. The warm water pool/lagoon was my place to be.....
Deidre Unangst, Nora's mom (www.caringbridge.com/visit/Nora)
Chardon, OH - Monday, March 3, 2008 3:51 PM CST

Great job! The Coffeehouse event sounds wonderful!
Doug S <dsetzer@27seconds.com>
Columbia, MD - Monday, March 3, 2008 7:33 AM CST

Congratulations on such a great financial result - it sounded amazing - wish i could have been there.
Enjoy your time away - blessings to you all.
Diane
- Monday, March 3, 2008 3:56 AM CST

You guys are so awesome! I'm glad it was so much fun and so successful! I can't wait to hear about your trip and how much fun you had, I hope you get to relax a little bit too!
Take care!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, March 2, 2008 11:59 PM CST

Yeah! It sounds like such a wonderful and fun night. I so wanted to be there:( Maybe, next year. Have a great family time on your trip. I love waterparks.
Blessings, Val
Carly's Mom
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Sunday, March 2, 2008 6:17 PM CST

Congratulations on your successful fundraiser. I was hoping to attend but we did get a bit of snow here in PA on Friday night and Saturday.
Great Wolf Lodge is awesome and you will have a great time. We will keep you on our prayers. God Bless.
Love,
The Quinns
Lisa, Tim, Ashley and Meadow
Lisa Quinn <lquinn@ptd.net>
Greentown, pa usa - Sunday, March 2, 2008 11:06 AM CST

Wow $7700 towards a cure...get working guys we need it!
Thanks a million!
The Broenimans <parrothead5@new.rr.com>
Appleton, Wi - Sunday, March 2, 2008 11:01 AM CST

Hope the coffeehouse was wonderful - wish I could've been there...but you know my heart is always with you all.
Congrats on what sounds like another stirling success!
C
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Sunday, March 2, 2008 10:04 AM CST

Dear Kristin & Family,

Wow! Last night was spectacular! A standing room only crowd. You had an incredible turn-out of people who came who love and support your family. The cookies were fabulous (you cannot possibly have any leftovers this year). The best two musical performances of the night were your dad's, and of course Genna's solo. I will leave all the details to you. No one can write the way you do. I got two of the best Genna hugs and kisses. Genna was actually looking for me. What a sweetheart she is! I cannot believe that I won the two autographed books and CD's by Sandra Boynton. Jay and I listened to the CD's all the way home.

You all did a phenomenal job last night. I hope you raised a ton of money for The Children's Tumor Foundation and NF research.

I hope you can relax and enjoy this beautiful, sunny day today...you deserve it.

With Love & Thanks, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Sunday, March 2, 2008 9:32 AM CST

Well, it's happening- Right Now !!! and I hope it's going Famously !!! And that you're raising Tons of Money for the NF-1-NO-More Cause !!!!
And I forgot to tell you in my last post that I can't Even believe how Cute your two girls are in those lovely snowy pictures !!!!
love, alice, lexie's mom
www.caringbridge.org/visti/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Saturday, March 1, 2008 9:30 PM CST

Well I'm thinking you should be relaxed!!! about now and everything is running smoothly!!! heres hoping and praying. anyway it will be great and a few glitches make it all the more memorable.
All that cookie talk made me hungry - and I just had breakfast.
Love and prayers
Diane
- Saturday, March 1, 2008 4:27 PM CST

IT'S HERE!!! You made it! Just wanted to wish you well tonight! When the dust settles, you'll have to share some of these cookie recipes....
Kelly
SK Canada - Saturday, March 1, 2008 10:13 AM CST

I am so glad you have happy thoughts and lots of cookies! I so wish we could be there tomorrow. I can't wait to hear how things go, I know it will be fabulous!
Take care!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Friday, February 29, 2008 11:37 PM CST

Just a quick note to wish you the best of luck tomorrow. I know that you will not need it because it is going to be a blast. Wish we could make it because I love your those chocolate chip cookies!

Devon was so happy to meet both Genna and Rosie last week (was it last week?) ok you know I am only operating on 2 cylinders... anyway she came home and told her Dad & then she went around the house saying "I can't believe I met Genna... I like her! she likes to read" couple of times. They are so funny. Anyway I know you are up being all nervous about tomorrow... just remember even if you raise one dollar, it is worth the effort and the cause. Have fun & eat some cookies for us.

Friends from Southern Jersey
Banu, www.endlesshope.org
Cherry Hill, NJ - Friday, February 29, 2008 9:50 PM CST

Thinking of you tomorrow, I hope it all goes smoothly - I'm sure it will be a wonderful evening, I wish I could come ... love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Friday, February 29, 2008 4:27 PM CST

Hey Kristin! I'll be praying for smooth sailing tomorrow night. Wish I could be there but I'm sent some $$ to my sister Cath to spend on anything involving chocolate.

I read your site faithfully and was so pleased to hear about Sandra Boynton's contribution. She's Nick's favorite author - now more bonus points for her!!!

God bless.
Cristin (Touhill) Luea <ctewey@hotmail.com>
- Friday, February 29, 2008 2:26 PM CST

Dear Kristin,

I am so looking forward to tomorrow night. Between the great cookies and raffles, it will be so much fun. I am a little nervous about Jason getting in on time tomorrow...weather not looking to good on our end. I hope it does not snow.

I am so proud of you Kristin...your fundraising event will be fantastic!

See you soon (I hope)
Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Friday, February 29, 2008 1:57 PM CST

Hey Kristin!
In case I don't make it back to G's page today or tomorrow I just wanted to wish you the best fundraiser EVER!! Thanks so much for all you do for ALL of our kiddos, you have no idea how much it means to us! Have tons of fun, enjoy the company and the cookies and try to relax and enjoy the event as best as you can : ).
Tara, Lon, Preston & Ethan (www.caringbridge.org/visit/preston)
MI - Friday, February 29, 2008 11:25 AM CST

Yes, we've been given a gift in our special children.

So on those random days when I completely melt down in a blob of tears and terror, it's real. But later I feel guilty because my kids are still breathing air, and not just breathing but they're going to school and living their lives and it's just me and my nightmares sometimes that keep us from moving forward with an attitude of gratitude.

It was one or two days after you found out about Rosie I mentioned it to my therapist who told me I needed to make friends who weren't living lives of tragedy.

She means well but she doesn't get it. As terrible as it is, I know you're not living a life of tragedy and neither am I. Different from the lives of most but that's not all bad and its certainly not tragedy.

Wishing you well my dear.

Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Friday, February 29, 2008 2:07 AM CST

Kristin,
There is nothing wrong in reflections. It shows us where we have been, how far we have come, and gives us hope for tomorrow. Your family has traveled this path with tears, joy, humor, and most of all, with courage. I am proud to call you my friends. I am praying for a wonderful night for the Coffeehouse with lots of great weather, a full house, and lots of $$$. I so much wanted to be there, but this weather is so crazy and I don't think Carr is up to such a long trip right now. Maybe next year...
I love the new pics of Miss G and Rosie, too.
Blessings, Val
Carly's Mom
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Thursday, February 28, 2008 8:15 AM CST

thinking of you often. I hope your coffee house raises a ton of money, wish I lived closer and had less appointments so I could come. I'll be there in heart.
Hugs to all of you.
Ori and Gabbie <harley00@nep.net>
Kingsley, PA - Wednesday, February 27, 2008 9:16 PM CST

oh, Kristen, Honey- ME, TOO !!! that's what i kept thinking the entire entry !!! Why did we get so lucky (for today ) ????
Who knows ??? Why do some kids do so well, and some just die, a little at a time, but die all the same ???
WHY ???
I have no answers, but I have the same questions- And so today, I am chock-a-block FULL of gratitiude for the gift that we have been given- the gift of STABLE- at least for this DAY !!!!
So thank you for such a poignant and beautiful and heartful post !!!
Thank You -
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Wednesday, February 27, 2008 8:32 PM CST

Two years!!! Yikes - I remember we were off on holidays then and i could not get regular news - Take the gift thats given - you deserve it. Best of luck with the Coffee House - wish i could be there - sounds amazing. Take care - Love and prayers
Diane
- Wednesday, February 27, 2008 8:06 PM CST

Dearest Kristen,

Wow, by far this post has hit home the hardest...

You have officially typed all my thoughts precisely. You don't know how many times I wanted to write what you did, but did not know how...

"Why did we get this gift?

What are we to do with it?"

I am so very GRATEFUL for my gift. With all the emotions we deal with, side effects, doctors, doctors and more doctors, and then scan days.

I know so many other mothers would give anything in this world to have these things to deal with again.

My heart breaks also as I read and watch many of these beautiful brave children fight so hard. I know it's not "my prayers" that have made the difference.

I do know this however. God knows, He understands, and I believe His ways are perfect and just. One day we will have those answers we long for now.

As far as being "healed", to me it's a promise to all of us who believe. Either here on this side of the river, or the other.

Thanks for having such a huge tender heart Kristen. I'm so blessed to know you!

Susan

PS Sorry if I got rambally, gosh such a hard/personal and difficult topic.

Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Wednesday, February 27, 2008 4:21 PM CST

Hey Kristin! I just want you to know that we're thinking and praying for you guys! Will be praying the coffee house is a huge success & I wish I could be there! Love to Dave, Andrew, Genna & Rosie!
Mary Camiolo <marycamiolo@gmail.com>
- Wednesday, February 27, 2008 3:33 PM CST

Hey you,
I'm too tired right now to really have a good entry, but I had to say hi. Thank you so much for the cards, the boys loved them. We had a spaghetti feed at school tonight and Joey's eye appt tomorrow, but hopefully we can call soon!

I so understand your whole entry. Even though we have had some of the rough breaks, we have been lucky in a lot of ways. It's also hard because it's always there, but you hope it will stay quiet....so much for a mom's brain to handle. You have a huge week going, with friends' birthdays and the Coffeehouse and anniversaries of really scary stuff.....not to mention CHOP. (Joey likes going to the doctor too, they're so twins. I think even though they are young, they feel that they are missing out on something, even if it is yuck!) It's so wonderful that you share with us, it will also be great for our kids to read these sites and see just how strong they/we are.

Thank you for being so wonderful! I hope you have a moment of peace this week, I'm glad you have the trip to look forward to. We have one coming this way. There is supposed to be one (Wolf Lodge...can't remember the whole name) opening up this summer or something near Portland....we are so there!
Anyway, we love you guys and are thinking about you!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, February 26, 2008 10:36 PM CST

Kristin,
I often think about why we have been spared the harshness of NF. I too, read all those caringbridge sites, usually with an abundance of tears, and some smiles. I thank God that my only child has a mild case, and has not required treatment. Of course, the saying, "That which doesn't kill you makes you stronger" and I know for me, that is the case. NF has helped me evolve into the Mother/Woman and I am, and am still becoming. So, I believe that you have been given your gift so that you can do what you are doing - advocating for your children, and educating others about NF, BTs, and baking really good cookies for the Coffeehouse! Hang in there my friend.
Kelly
SK Canada - Tuesday, February 26, 2008 3:16 PM CST

great pics! that snow day was beautiful!!! Rosie looks like a snow fairy - something out of a ballet. Good for Genna for getting out and playing in the snow.
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Tuesday, February 26, 2008 9:09 AM CST

Hi,
I have been praying for all of you. I was glad to read that things are going good.
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Saturday, February 23, 2008 4:31 PM CST

I'm glad to hear the basket arrived on time! Next year, I will arrange for it to arrive the day before the coffeehouse so you don't have to smell the coffee and chocolate for a week and a half! But seriously, I am just glad I could help in some small way. I look forward to actually attending one one day!!! I am glad to hear that the appointments for both girls went well, and what a treat to see some old friends!
I love the snow photos. We have warmed up quite a lot this week, so it actually feels like Spring might really be around the corner! You can check out Ryan's site for our snow photos! Take care, and good luck next week if I don't get a chance to check in - I started working and it has just interrupted all my personal time!
Kelly
SK Canada - Saturday, February 23, 2008 2:34 PM CST

Oh Kristen,

I know you are so RELIEVED, so am I! Hope your headache is better now, and you are sleeping peacefully!

LOVE the new pictures, how cute. How much fun! Snow, I only dream about that white stuff.

Enjoy your weekend! (stay warm!)

Susan
Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Friday, February 22, 2008 9:09 PM CST

I LOVE the pictures! They look so cute! I can't believe you got snow. It has been like spring here and I am so ready for that!
Thank goodness appointments were all good! I checked in yesterday, but was too tired to post.....I wasn't sure if it would make any sense! Our appointments/stress caught up with me. I was in bed at 9, which NEVER happens.
I'm hoping the twin stuff sticks, Joey has an eye appointment on Wednesday of next week. I told my boss that if it didn't turn out well, he might need to look for me on the roof!
Glad things are coming together for the Coffeehouse. When we were in Spokane on Tuesday I bought a Sandra Boynton book and CD. I/the boys have almost all of her books, but did not know about the music! I have never seen the music and this fun bookstore we go to had a bunch....I wanted to buy all of them, but decided on one!

Anyway, we are thinking about you and so glad everything turned out well!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Friday, February 22, 2008 8:50 PM CST

Kristin: So sorry we missed you, G and Rosie at CHOP. I can't believe that you were literaly yards away from us! Dr. B didn't even say that you were scheduled to come in that day. Guess with all that HIPPA stuff! Anyway, sounds like it was a good visit. Ours was too other then "Little" miss B weighs 59 pounds! I almost fell off my chair! Anyway, love you lots and G and Rosie too. Hang in there and know that I am here if you need anything. Love, Aimee
Aimee Disney <Briannaashleysmom@yahoo.com>
Aldan, PA USA - Friday, February 22, 2008 7:21 PM CST

My reaction to the new photos was how gronw up Genna looks - she is sure growing quickly into a lovely young lady - Rosie of course looks like a darling with those curls peppered with snow. One step at a time as you have always done. While you get snow we are expected to hit 36 celsius today - our hottest day this summer.
Diane
Australia, - Friday, February 22, 2008 2:35 PM CST

WHOOO HOOO!!! I just knew you guys would get good news for a change. Not that I haven't been praying like a mad woman, but still I felt good coming to check in this time, no deep breath before opening the page. I am so so happy for you guys and glad to hear that Rosie doesn't need to scan till July. I don't know how anyone could handle two MRI's a month a part, man, that would take serious amounts of chocolate or my pre-MRI stress relief baked goods!

Love and celebratory cheering in PA,

Sherry-Lee
www.caringbridge.org/visit/charlottemcauliffe

Sherry-Lee <momtocharlotte@aol.com>
Broomall, PA USA - Friday, February 22, 2008 9:32 AM CST

So glad to hear things went well for the girls. Even now, after doing this for almost 4 years, I still have a breakdown every time Joshua has to go into that wretched MRI machine... and he's been in remission for 3 years! I don't know how we manage to keep doing this for our kids, but somehow we do. I'm glad to hear it was uneventful for you this time around :)
Amanda Holman <aholman515@gmail.com>
Coopersville, Mi USA - Friday, February 22, 2008 9:30 AM CST

Yeah! What a way to take my winter blues away this morning! So very happy about the great reports. How awesome was that getting to see so much "family", too. Have a great weekend though I know it will be busy preparing for the very soon Coffeehouse night.
Blessings, Val
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Friday, February 22, 2008 9:06 AM CST

So glad to hear you're feeling better.

There's this piece of me that is just marveling that you've got one child showing the other child how a neurological exam should go.

It's a strange, scary and wonderful world we live in.

Praying for all of you.
Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Friday, February 22, 2008 3:18 AM CST

fantabulous news.
glad you could look in on our little nephew. we're praying up a storm for him, but haven't seen him at all...though he is very photogenic!
so happy to hear that the reports were good today. Hooray!

Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Thursday, February 21, 2008 11:53 PM CST

I am so Happy for you and all the good news!! I was thinking of you all long today, and now I can relax...some.
Hugs,
Ori
Ori and Gabbie <harley00@nep.net>
Kingsley, PA - Thursday, February 21, 2008 8:52 PM CST

Wonderful Wonderful Wonderful - Great to have such cheery reports - and catching up with Andrew and other friends - what a blessing of a day.
Sweet dreams
Diane
- Thursday, February 21, 2008 7:51 PM CST

What wonderful news!!!! I love to see your good reports.

Big Smiles and Hugs,
Anne (Charlotte's Grammy)
Anne Taylor <AET1955@aol.com>
Philadelphia, PA USA - Thursday, February 21, 2008 7:38 PM CST

picking the hardest projects is a sign of genius :-)
Hope all is well at CHOP. Prayers aplenty are coming your way... and it sounds from the weather report that day 100 may even be put off til next week, so you have plenty of weather days to help the schedule out.
Peace and Good.
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Thursday, February 21, 2008 1:04 PM CST

Heck just realised how far ahead of you we are - been offline and worried about you but now realise you are only just thinking about getting up so will have to wait till "tomorrow" (my time) - more prayer time though
Love and prayers
Diane
- Thursday, February 21, 2008 4:11 AM CST

Hey, Guys! Miss you! Praying for your long journey to CHOP tomorrow. Are the kids at Berkeley Aquatic club? They are excellent there! Towney has such a way with kids. You'd all enjoy him.
Will you video your coffee house - or at least publish a program - who's doing what? I can't believe we have to miss it.
Here's a new joke for Genna :What did the brain say to the skin? How are you feeling!!? Katie is into corny jokes these days. Miss you!
Jen <gjbrowne2@yahoo.com>
- Wednesday, February 20, 2008 9:27 PM CST

Dear Kristin,

Wishing you all the best tomorrow. You definitely have my prayers. Funny, sometimes when I think about it, I really do miss CHOP. It was a safe place to be. The girls will do good tomorrow. They are in the best hands.

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Wednesday, February 20, 2008 9:21 PM CST

Just to remind you that I will be into Thursday early so here in Australia prayers will get a head start. HA-llelujah! for slush - see for one less Therapy issue, have to find something else!!!
Take care
Love and prayers.
Diane
- Wednesday, February 20, 2008 4:40 AM CST

Just wanted you to know I am still here praying sweet friends!

Christian's school is performing Godspell so I had to laugh at your "wicked" music....

Love and Blessings,
Judy and Lisa
Charlotte, NC
- Monday, February 18, 2008 8:39 PM CST

was reading your entry w/o looking at the date, and thinking...omg, Andrew's got the stomach bug a THIRD time? Purell is just not what it's cracked up to be.
L0L life is rich, isn't it.
hope all is coming along with your plans and that the coffeehouse is all you hope and more. hugs for the kids.
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Monday, February 18, 2008 8:31 PM CST

Hey Kristin,

As always, I enjoy stopping by Genna's site. I love your sense of humor. No matter if you are on a "Whitewater River of Screaming Woe" or drifting on a "Lazy River" you can find something humorous.

In other words, you always make me smile.

I know it's God that keeps you going, and you are such an inspiration to all of us.

Praying for good results for Rosie this week. I know you are excited about the Coffeehouse, I am too!

Blessings to you my faithful friend, who listens to "wicked music"!

Susan

Jordan's Site <Susan2956@yahoo.com>
Baton Rouge, - Saturday, February 16, 2008 6:53 PM CST

Wicked!! Love it. Chin up one day at a time now - plenty of love and prayers going your way.
Take care
Diane <dikerno@hotmail.com>
- Saturday, February 16, 2008 0:55 AM CST

I love the story of Miss G's version of the song. When Carly was little when we were on road trips we would always sing "Row,row,row your boat". Finally, one day I realized that when Carr was singing the part, "life is but a dream" she was singing "life is a buttercream". Those are the things you always look back and remember. I love those memories and the girls love hearing those stories no matter how much older they get. Speaking of never getting too big I had to go get Elise from college today as she has a severe case of bronchitis with fever and all the aches. Tonight she took a bath and then felt too weak to do her hair so I got to do my almost 22 year olds hair as she was wrapped in my old fleece robe. Then, she curled up on the couch with her head laying on me and said, "This is nice." Tonight, I have both my girls under one roof and I am a happy mom:)
Blessings, Val
Carly's mom
Val Hiers <vhiers1@yahoo.com>
Peru, IN US - Friday, February 15, 2008 7:22 PM CST

Hope the Valentine fairy found you with lots of chocolates. As usual always in my thoughts and prayers
Take care
love and prayers
Diane
Australia, - Friday, February 15, 2008 4:23 AM CST

Happy Valentine's Guys! I just sent you a long rambling email about the hearing department and forgot to say that!

Love,
Sherry-Lee

www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <momtocharlotte@aol.com>
Broomall, PA USA - Thursday, February 14, 2008 8:39 PM CST

Just stopped by to send lots of Love and Happyness your way on this special day and every day!

We Love you guys! The Sheehan's of Cherry Hill
Banu <banu@endlesshope.org>
Cherry Hill, NJ - Thursday, February 14, 2008 3:35 PM CST

HAPPY VALENTINE'S DAY !!!! to ALL !!!
Enjoy the Day of Chocolate Feasting !!! (hopefully some Really fine imported Chocolates !!!)
Thinking about you as you wind up for hospital yuckiness and coffe shop loveliness !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Thursday, February 14, 2008 1:48 PM CST

Dear Kristin,

It has been FAR too long since I have signed in to say hello; however, I couldn't let the day pass without wishing you a Happy Heart day!There just aren't enough hours in the day to do all I want to do, however, please know that even in my absence of signing, I am ALWAYS praying!

I have been by so many times to try and leave some words of encouragement and I have had a difficult time to know what to say. It finally occurred to me I didn't need the perfect words, I just needed to let you know I haven't vanished and I am still praying so hard. I hope the appointments will be painless at CHOP. I know you are all in excellent hands there though. I have been SO AMAZED about the coffeehouse journey and all you are accomplishing...you go girl!!!

Love and Blessings,
Judy and Lisa

Happy Congenital Heart Defect Awareness Day!
- Thursday, February 14, 2008 9:22 AM CST

Attention Prayer Warriors::

The Prayer Warriors at Angel_Wings
will be having a Prayer Vigil Tuesday,
February 19th between 8-9 pm EST for
and all the children and adults on our
prayer list and our Angel Families.
Please join us in prayer for these
families..

Angel_Wings

Etta/Angel_Wings <grandmaettas@aol.com>
- Thursday, February 14, 2008 5:27 AM CST

Hi..Remember me? My Madison has NF and goes to CHOP. Maddie had a hearing test it was in the Seashore House. From the wood center garage take the elevator to the 1st floor. (like you were going to Dr. Lui's) Go out the doors to get outside and the building is to the left. Hope this helps. Good luck next week with the girls. Hang in there.
Linda Sassa <DBBSASS@aol.com>
- Tuesday, February 12, 2008 8:31 PM CST

Hi All,
Thank you so much for the posts! We were driving and saw a car with New Jersey plates and we were so excited! I so wish we were a little closer to actually see you!

You are doing so awesome with the fund raising, and Sandra.....I love her books! One of these days I'm going to get a fund raising project going!

Take care and good luck with the flu bug again! I hope it doesn't go all the way through the house!

Love,
Reca and the boys
Reca Thomasson <rmthomasson@cableone.net>
- Tuesday, February 12, 2008 8:16 PM CST

Dear Genna,
I thought I heard "Oh, Santa," but then thought that I hadn't had enough coffee, and was hearing things. That happens, we sometimes hear what we want to. And Rosie, Sandra had to have CAT scans, PET scans too, and we wondered about why those were the names given and made up different things to say about them. Remember to bring stuff to do, because you will be waiting a long time. Then, you go through the donut, and you're out and you go to the Mall or out to eat. It doesn't hurt, it's just a better way for them to take a picture of you.
See you at the next choir rehearsal.
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Tuesday, February 12, 2008 7:26 AM CST

3 weeks - plenty of time - no worries for you!!! Ha ha
love and prayers for the dual CHOP visit.
Diane
- Tuesday, February 12, 2008 5:12 AM CST

OK Kristin!

All I need to do is check your blog each time I feel sick of dealing with BT and you just crack me up... my spirit lifts and I just can't help laugh. Rosie got you good! I just told the story to my poopers and they too laughed hard and then Devon said... why do they call it a "CAT" scan anyway. Thanks Kristin now I have to go through it :)

I wish you guys lived closer... we would love to come North for the coffee house event... instead, can I send some Olives?

God works in so many ways! I am good with him again. Hey email me some details on this Coffee shop event, I would love to help.
Banu <banu@endlesshope.org>
Cherry Hill, NJ - Monday, February 11, 2008 7:36 PM CST

Sending you hugs and prayers.

www.caringbridge.org/visit/johnshattuck

www.caringbridge.org/visit/bettywilliams

Elaine/Angel_Wings <eshattuck1@cox.net>
- Monday, February 11, 2008 5:45 PM CST

HEY- More Manna from Heaven - $3,000 ??? WOW, Now THAT'S a Lot of Manna !!!! You go girl !!!! Maybe 2008 is the year we'll find a cure for NF AND low grade astrocytomas !!!!!
Vomit stories- I could tell a few- one Notable involves a lobster/clam bake and a night of oral chemo- You do the math- Not pretty- And in a beach cottage with NO laundry facilities, of course !!!
YIKES !!! is Right !!!
take care, and LET the MANNA ROLL !!!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Saturday, February 9, 2008 9:00 PM CST

Dear Kristin,

It's hard to keep up with you these days. Each time I check in there is a new update.

Kristin...it sounds like your Coffee House for a Cure is going to be a huge success, raising tons of money! Isn't wonderful how generous people can be. What really touches my heart is that you never think that people notice you, your family, your struggles. You live your life each and every day...and people do notice. There really are such good people in this world. I am so happy for you.

See you all in a couple of weeks!

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Saturday, February 9, 2008 8:49 PM CST

Hey Camiolo Family ~

Just getting caught up with your many "adventures" this New Year! Gotta say.... "NF Sucks" to the tune of Jingle Bells might just have to be my new running tune favorite =)

Keep fighting the good fight!!

Love and Hugs from O-H-I-O

Amy Curtiss-Kast (GiGi's mom) <bkast@columbus.rr.com>
Hilliard, Oh 43026 - Saturday, February 9, 2008 8:03 AM CST

Thinking of you often, but never much time to let you know.
If we could combine Gab's lack of eating with G's wanting to eat......we would have one less worry and wouldn't that be great? We are heading for debulking surgery..ugh times a million. The tumors have gotten to large and to painful for Gab's to deal with. Sorry for not stopping by sooner. Sending my love to all,
Ori
Ori and Gabbie <harley00@nep.net>
Kingsley, PA - Friday, February 8, 2008 8:39 AM CST

Dear Kristin,
I was at the health food store, shopping for, um, health food, when a lady mentioned that dark chocolate lowered her high blood pressure to normal numbers. Her prescription is 3 dark chocolates a day, no nuts or fillings. Well, I'm trying that, it certainly can't hurt, and, as Lucy said it, "it's so tasty too!!"
In any case, thanks so much for mentioning Emmanuel Cancer and the food drive. I've been trying to spread awareness about the desperate situation of some of these families, and I hope that we will be able to help them. It is inconsequential whether we are dealing with cancer, brain tumors or neurofibromatosis. No child should have to suffer, and I feel obligated to do as much as possible to lighten the burden these families have.
Thanks so much for your support.
It sounds like the Coffee House will be a lot of fun and I'm certainly looking forward to it.
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Thursday, February 7, 2008 11:16 PM CST

Do you know that there were only three states that thought the Giants would win? New York of course, us here in Indiana because we can't stand the Patriots and we love anyone with the name of Manning, and I can't remember the third state. We were doing the happy happy joy joy dance here, too! I want Elise to have the chocolate fountain so bad for her wedding. I think wedding favors for the guests are overated and I think they would much rather play in chocolate than take home some favor that will probably get tossed or go in to a drawer somewhere. Hope everyone is doing well and I am praying for Miss G and the food situation. We went through it with Carr and it was not a fun time.
Blessings, Val
Carly's Mom
Val Hiers <vhiers1@yahoo.com>
Peru, IN - Thursday, February 7, 2008 6:26 PM CST

Hi, Just wanted to know we are still checking on you all, I often just read and not post. I am right there with you on the food battle with Carly. I will let you know if I come up with any good ideas. Have a great day! The McKay Family
Chris <christinemckay@gmail.com>
Temecula, ca - Thursday, February 7, 2008 8:42 AM CST

Hi Cams!
I'm so glad you had a good Chocolate Day....and a good game and some good times around there! :0) I so understand the dentist trauma, Joey is going tomorrow for a root canal....not fun!
I'm so sorry G is worrying so much, so not fair. I wish there was something that would help, so not fair.
We are thinking about you always and we will be in your time zone in just a few short days!

Take care and good luck with the Coffeehouse plans, I so wish we could be there. You are my hero!
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, February 7, 2008 0:56 AM CST

I'm here to confess I didn't follow the fast and abstinence rules today (Ash Wednesday). I didn't get ashes.

I was going to, but I would have had to get up early and I was up all night assessing the tornado situation. What do California folks know about tornadoes?

I was too stressed to fast today with the bumpy flight home.

So I was going to try and do a kind of Ash Thursday thing. We'll see how this works.

Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Wednesday, February 6, 2008 11:19 PM CST

since it's lent, prayers please for my friend's sister, Sarah, who has asthma so badly in the hospital now that she has cracked three ribs.
at least I started that sentence with a warning. feeling a bit like Lent actually started Monday.
But hang in there with the food stuff- I always feel like that's the part I can relate to {sigh}. I thought having G make dinner with you was a splendid way to work on things! Frozen strawberries in a blender with a little yogurt can also work wonders- and seems like a shake... but when you want chips, well... you might also look at pirate's booty, which is also caloric, but less offensive than, say, doritos.
prayers :-)
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Wednesday, February 6, 2008 10:28 PM CST

Genna is a beautiful young lady and I think looks very much like her mom did way back in the dark ages. :)
We are praying for Genna and the rest of the Camiolo Clan!

Mary Hack Kalwite <marykalwite@aol.com>
Vineland, NJ USA - Tuesday, February 5, 2008 8:34 AM CST

So glad you are thrilled with the results! I, myself, am not a big football fan (can we still be friends?), but I am more interested in hearing all the gooey details about your Chocolate is the World's Greatest Resource party - now THAT is something we do have in common!!!
Kelly
SK Canada - Monday, February 4, 2008 12:10 AM CST

Kristin -

Big cheers at our house too! Ethan is a Peyton Manning FANATIC, so if it couldn't be the Colts we were rooting for little brother Eli. Plus, Levi's favorite is the Giants, too! I don't think Ethan slept all night long - I think he waited til we were asleep and turned on ESPN in his room LOL.

Big hugs - yay Giants!!! Gotta love the underdogs!
Melina <melina_mayo@yahoo.com>
New Castle, VA - Monday, February 4, 2008 11:15 AM CST

Hi Genna,
Just stopping by to say hi and that I am praying for you.
Have a nice weekend!

Kristin,
I am a prayer warrior with Angel_Wings. I wanted to let you know that Genna and your family are in my prayers. Sounds like there is plenty of activity at your house! (I really enjoy reading your posts). On your post today Feb. 1 you wrote about the football game Sunday, from what I've read you are a Giants fan. I'll be cheering for the Giants also. Especially because Corey Webster #23 is from our small town, Vacherie, Louisiana! Well, take care and have a good weekend!
Pat Becnel

Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Friday, February 1, 2008 10:16 PM CST

Yes, we do desperately need to cure this. I wish the general public was more aware of what's going on...

LOL, I have a 3 ring binder for Andrew's records to. A *big* one complete with tab dividers for research, inspirational stories, and of course records, results, scans, ect. Call me OCD, but it came in real handy when we moved to another state and got a whole new team of doctors.

Glad everyone's feeling better!

Jess
Andrew's Mom
www.caringbridge.org/visit/andrewcruise

Jessica <jess.randomness@gmail.com>
Stow, OH - Thursday, January 31, 2008 4:29 PM CST

Hi Cams!
I hope you are all feeling better! I hope the adults avoided the bug. Thank you so much for the note, Joey had an awesome birthday. Now we are counting down to North Carolina. We will have to call you when we are in your time zone!
Take care, no more fevers and yuck for you!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Wednesday, January 30, 2008 11:16 PM CST

am so looking forward to chocolate is the worlds greatest natural resource day. this has been the longest week ev-er... and it's only wednesday, which means choco-latte here I come.
wondering if any of your sibs will be stopping by. I miss Emily.
hope your days are peaceful.
C
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Wednesday, January 30, 2008 10:04 PM CST

Oh Kristin- Life has been Mean(Vicious, really) to you of Late- I think Life should EASE UP on you and yours a BIT !!!
That's What I Think !!!!
So Sorry to hear about Emma's moving on to the next place- Her poor parents !!! I didin't know her, but it doesn't really matter , does it ???
I'm thinking of you and your precious kids and all of THAT !!!!
(and i wish you had an automatic update button, so i wouldn't have to go searching all the time- you and a bunch of others)
Sorry to vent all over your website !!!
loving you hard from Ma. !!!
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Wednesday, January 30, 2008 7:15 PM CST

Hi Kristin, Your cousin Tricia in Maryland told me about Genna since my 9 yr old son Matthew also has NF1. What a surprise to see photos of friends Sandra and Marta Blumberg on your site---the NF world truly is connected! Your family will be in our thoughts and prayers---and hello to Marta too. Hopefully she remembers me from the Italian Night for NF in Baltimore in November. She spoke beautifully about Sandra and her journey with NF.
Penny Freeman <cfreeman6521@hotmail.com>
Millersville, MD USA - Wednesday, January 30, 2008 8:52 AM CST

Dear Genna,
I'm so glad that you will be part of the children's choir. You look so good up there, and you are so serious about everything. You made me laugh, and I thank you for that. Anyway, I hope that we will both stick with it.

If you ever want to come over my house afterwards, you are most welcome to.
See you next week.

Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Tuesday, January 29, 2008 11:07 PM CST

Sorry all the kids were feeling so yucky last week and weekend. Hopefully, Rosie starts feeling better today. I mapquested from our house to the coffeehouse. It is around 910 miles or a little over 10 hours to get there. Gosh, I want to come so bad! Just not sure of March weather and that drive, but we might surprise you and show up for some of your famous cookies.
Hugs & Blessings,
Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN US - Tuesday, January 29, 2008 8:12 AM CST

Neurofibromatosis may suck, but that doesn't mean you can't dance to it.

Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Monday, January 28, 2008 10:30 PM CST

Neurofibromatosis 101
Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Monday, January 28, 2008 10:27 PM CST

Keeping you in my prayers!

I am the Lord, your God, who takes hold of your right hand and says to you, do not fear, I will help you. Isaiah 41:13

www.caringbridge.org/visit/johnshattuck

www.caringbridge.org/visit/bettywilliams

Elaine/Angel_Wings <eshattuck1@cox.net>
- Monday, January 28, 2008 8:42 PM CST

Hi Kristin,

Hope your feeling better by now and had a good weekend with your family. I think your head is spinning from everything you have been dealing with lately. You are doing such a good job.

I got such a laugh with Rosie finding hair on her arms, half dressed, just before the school bus came. The innocence of a child. She is so sweet.

Jason's Spring Break starts March 1st. Hoping I can get him home from Florida early/no delays that day. I do not want to miss the Coffeehouse for a Cure this year.

Love, Susan (Forever Timmy's Mom)
www.ttpf.org

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Sunday, January 27, 2008 8:25 PM CST

Hi Cams!
I'm sorry you have been under the weather, hopefully it will stop with Andrew. I told Drew that Genna and Andrew had been sick so he made up a poem for you.......

You've got the flu?
BooHoo!
Guess who cares about you?
Drew!
Hope you feel better soon!
Love,
The Thomassons
Reca Thomasson <rmthomasson@cableone.net>
- Sunday, January 27, 2008 2:04 PM CST

Hi Kristin,

Devon was so sad to hear about Rosie & asked to leave a note (it was so cute...Paige was screaming in the background AGAIN "Devon look Genna is still wearing my uniform")...

Anyway, I just wanted to check in and see how you guys were doing. I hope you are staying away from these colds or flue like things that have been going around in South Jersey. We have been so sick all week and are just now getting back on our feet.

I haven't been able to pray or chat since Rosie's news... it's just not fair that good people like you guys have to go through this and I have been so very angry at you know who!!!! Although the sibshop at CHOP today, made me realize that we are not alone and there are so many parents dealing with things even more difficult than us (if you can imagine that possible). Despite all that we are going through Kristin, I guess we still need to count our blessings no matter what.

Until next time.

Banu; Devon's mom endlesshope.org <seansheehan@comcast.net>
Cherry Hill , NJ 08003 - Saturday, January 26, 2008 7:36 PM CST

Dear Mrs. Camiolo,

I am really sorry that Rossie had to have the MRI and has a BT like Genna and me. I bet Genna will teach her all the moves like stay still if she has to get the needle or MRI. That's all I want to say for now.
Devon Sheehan <devon@endlesshope.org>
Cherry Hill, NJ Camden - Saturday, January 26, 2008 6:55 PM CST

Dear Kristin,
Mark told me that I had sent him a letter from N.F. too, it just permeates our minds, non-stop. We DO live in neurofibromatosis land, even when we aren't there anymore...
I have a cute basket for the Coffee House, and know some local businesses that would very happily donate gift certificates, if you need them.
As for NF, when I said that it meant No Fun, Sandra came up with New Fun, I would say No Friends, she would say Nice Friends, Nice Fysicians (O.K., Sandra made everything fun, and I am trying to learn from her). It sounds like the Coffee House WILL be fun, no matter what.
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Friday, January 25, 2008 4:48 PM CST

Happy Australia Day!!!!! Hey gotta promote this great country to the foreigners out there reading this. Australia - Queensland (my home state) - Beautiful one day perfect the next - looking like that today. That said hope your weekend is peaceful and relaxing.
Love and prayers
Diane
- Friday, January 25, 2008 2:46 PM CST

I am so sorry about Emma. Sigh, too many this week, too many period. We're still praying here hard for you guys. I told Tom barring any serious illness we need to make the Coffee house this year (please tell me I didn't just jinx us) Speaking of illness I hope Genna feels better soon! At least there should be no 12hour CHOP ER marathon this time!

I also highly recommend the new Hairspray movie or soundtrack for cathartic loud singing. It pretty much demands a ton of living room silly dancing. And toddlers trying to mashed potato or do the slop is truly mood lifting!

Love the McAuliffe Crew

www.caringbridge.org/visit/charlottemcauliffe

P.S. Tell me if you need anything specific for the Coffee House. Basket to raffle etc.
Sherry-Lee McAuliffe <momtocharlotte@aol.com>
Broomall, PA USA - Thursday, January 24, 2008 7:30 PM CST

First of all, anyone reading through your posts needs to know you make the best cookies in the world, and they do not need to know the gnashing of teeth when the cookies -er- I mean, you, couldn't make it to our party this year.
Second... well, hang in just sounds doofy. But we're praying hard and hoping the good days outweigh the crappy ones.
peace. C

Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Thursday, January 24, 2008 1:40 PM CST

Hi, Kristin.

Sheesh, I'm sorry.

What else can I say? I really really hate that you're living through all of this nightmare right now. As usual, you handle yourself with unbelievable grace and dignity. But, I had to sign in and just tell you my heart is with you. I was reading Val's update on Carly's CB and gasped when she wrote of Rosie. So, in my panicked state I immediately tagged Doug S on AIM with 10,000 questions ...

Please let me know if there's anything I can do. That sounds so stupidly cliche, and I'm sure that from here in VA there probably isn't much I can do ... But call/email/text me (I'm going to email you my cellphone number).

GINORMOUS hugs coming your way!!!

~Heide
m/o ^Jessica^; forever 17
http://caringbridge.org/visit/jessicarandall
Heide
Marshall, VA - Thursday, January 24, 2008 10:31 AM CST

Hi K: ... I'm really seriously going to see if I can drive down from Massachusetts for your Coffee House day/night, March 1st, right? We've never met, but I am a fellow chocolate lover and I would love to try some of these famous cookies... let me get to work on that... and K, I'll bring some small things for the kids and I have a TON of really good (I mean really good) paranormal romance novels, if you want them, for diversional therapy.
Maria, Wm's mom <willjim95@hotmail.com>
Springfield, MA - Thursday, January 24, 2008 7:48 AM CST

Hi,
I found your guestbook via Carly H.'s My son, Jay, and I also have NF1, and Jay has a plexiform tumor. Saying a prayer for your family and the medical team. Have you ever been to the bulletin board for Children's Tumor Foundation? It is a great place to get support.

The parents are especially encouragaing and supportive. It is a great place to vent, rant and rage if needed. Prayers will go up across the country. If you visit I am MJA.

Please visit Jay site if you wish. www.caringbridge.org/visit/jayandre
Marcy Andre
Scottsdale, AZ United States - Thursday, January 24, 2008 6:33 AM CST

I love your posts - you always make me smile - sometimes through tears - you always manage to lift me when I want to lift and carry you. You are very special. Thank you for teaching me to cherish each and every moment of every day.
Love and prayers
Diane
- Thursday, January 24, 2008 1:32 AM CST

Dear Kristin, Dave, Andrew, Genna & Rosie,
Hello from southwest Florida! We just want you all to know that we love and miss you! We are praying for you.
Love ~ Mary, Pete & baby Noah :)
ps - Noah loves the rattle! He plays with it all the time!
Mary Camiolo <marycamiolo@gmail.com>
- Wednesday, January 23, 2008 9:37 PM CST

Kristin, I have to suggest Camp Sunshine for your family this summer. It's an awesome place where kids can be kids and adults get to be kids too!!! Check out their website...Campsunshine.org The BT week is July 5-11 this year. It's life changing!!!
Ellen Robertson <Scanmom@hotmail.com>
Wyandotte, MI - Wednesday, January 23, 2008 7:32 PM CST

Kristin,
You vent all you need to. That is why we are here. Because we care so much about a very special family that has touched all of our lives. You all are on my heart in such a big way right now. I know that I am one of many that are offering up big heartfelt prayers. Miss G,she is such a big sister to Rosie and meant well with trying to prepare little Rosie. You do know the Valentine Day's candy is on the shelves if you start on the last bag of Cadbury!
Blessings,
Val
Carly's Mom
www.caringbridge.org/visit/carlyhiers

Val Hiers <vhiers1@yahoo.com>
Peru, IN US - Wednesday, January 23, 2008 5:30 PM CST

Hi guys,

It's the long-lost Hebberds from the CBTF Kids' Cruise. I still owe you a CD of pix from the cruise....I have been soooo bad at follow-up (maybe you can give me Dave's address on Sylvan Way and I can drop it off on my way to work? I'm right off of Route 202).

Oh crap, we are just heartsick reading about Rosie's scan, but rejoice in G's. As for us, we were just "paroled" from NYU Medical Center on Monday...not even six days from a second subtotal resection. Peter is already walking, talking and watching Hannah Montana/HSM marathons all day...dramatic change from the first go-round. We're convinced that the man upstairs had a big hand in it...as he will in yours.

Would love to have you guys over when the weather warms up...Peter had a great time with "G", you're right, they have a language all their own. It's wonderful to spend time with people who "get it."

In meantime, we'll be keeping both your beauties in our prayers at night (looks like we'll scan in March, too, 2 months post-op).

Best to all,

Roxanne Hebberd
Roxanne Hebberd <hebbs@optonline.net>
Parsippany, NJ USA - Wednesday, January 23, 2008 11:03 AM CST

GO THE GIANTS !!!! - I don't understand the game but hey if you are fans than so am I. Now would you like to understand the game of Rugby Union or Cricket - I can help out there. Glad that you are fighting through - plenty of Prayers to uplift you are being said. Now If I could sing I would but other people would have to listen - will just say them under my breath.
Love and prayers

Diane <dikerno@hotmail.com>
Australia, - Tuesday, January 22, 2008 11:51 PM CST

Just a quick note to let you know I'm still keepin' an eye on ya - hugs and warm wishes being sent your way, today and always.

**eating M&Ms in your honor**
Merritt
- Tuesday, January 22, 2008 10:04 PM CST

Holding you close in thought and prayer.

I wish you were close enough I could show up on your doorstep with wine, chocolate, and Kill Bill parts 1 and 2.

:-)

Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Tuesday, January 22, 2008 12:47 AM CST

Not that I need to add to your insanity, but if you take the tune of "I Would Walk Five Hundred Miles" Neu-ro-fi-bro-ma-to-sis" also fits that. Have fun!!!

Kelly
SK, Canada - Tuesday, January 22, 2008 12:20 AM CST

Thank you for the link... I've added it to the list. Hang in there and know that we are all rooting for you and we're all here for you if you need us!!
Amanda Holman - Joshua's mom <aholman515@gmail.com>
Coopersville, Mi USA - Tuesday, January 22, 2008 10:16 AM CST

Dear Dave & Kristin & Gang,

Please know that we are praying for you. Sometimes I ask the Lord, "how much can people take before their hearts break, how much Lord... I don't get an answer, but I do believe that He is listening and that He is with you and He will not abandon you and He will work it to the good because you love the Lord so much. Sometimes I sense that His heart is breaking as he sees you all suffering so much. Well, for my two cents, I see in you a peace and a determination, and a love, and a beauty that is God. You are great models to me. I also know one thing for sure and that is He must love Genna and Rosie and Andrew so much to give them such great parents.

So, on a lighter note... "how bout them Giants". We're practicing our cheers for the Superbowl. Judy's, who is not a football fanatic... in fact she would probably prefer a Heidi re-run to watching the game... nevertheless, she is working on saying "woo-hoo" with some enthusiasm at the appropriate time. We're not there yet, but we have two weeks. God bless you and know we will continue to pray.

Dave & Judy and family
Dave Touhill <davetouhill@peopleofhope.net>
Warren, NJ - Tuesday, January 22, 2008 8:12 AM CST

Prayers as always from our house - Your writing astoundes me as always and moves me - someday I will show up to your book signing - I promise!

amy
hatboro, pa - Monday, January 21, 2008 8:38 PM CST

First of all, a tiny ray of sunshine - we finally have a SuperBowl that we can watch for the TEAMS (not just for the commercials) - Go GIANTS! That game had my heart stopped more than once.
And while I have long since had a committment for March 1st, it involves a holy hour with the CFRs, so if nothing else you'll be getting some major prayer-age from me and our local young adults while the guitars are warming up and raffle tickets are selling like hotcakes.
Was so good to see you, my friend. If there's something I can help with prior to March 1st even if I can't be there, please let me know.
And coffee. February.
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Monday, January 21, 2008 10:28 AM CST

Dear Kristin,
Last summer, I spent two weeks typing up interviews of NF doctors and researchers for the Children's Tumor Foundation. (I think that the vice president of CTf thought that work would keep me sane.) In any case, according to one doctor, "A child diagnosed with NF today will not have the same prognosis that a child 20 years ago had." A lot of research has been done (Boston and Birmingham), and I definitely believe that we are on the threshold of finding a way to stop tumor growth in NF. If you want, I can give you the transcription, which has the names of the doctors cited. Even though playing the waiting game is so difficult, please remember that there is hope.
The coffeehouse sounds like it'll be a lot of fun. I'm hoping to have Sandra's quilt that the kids drew put together by then and would like to display part of it. O.K., with all of the squares, it can't possibly be just one quilt, it is just too gigantic -- it could cover an elephant. Seeing it as a whole allows me to feel the incredible support that is here for us, even to this day.
So, on to the coffee house AND to another marathon, this time in L.A., where Mark, Sandra's brother, will be running with the CTF team on March 2!!
Marta Blumberg
www.caringbridge.org/visit/sandy

Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Sunday, January 20, 2008 10:48 PM CST

Kristin
Praying for you and your family.
Norma
www.caringbridge.org/nj/erikz
Norma Zimmerman <enzimmerman@comcast.net>
Lambertville, nj usa - Sunday, January 20, 2008 4:31 PM CST

Dear Kristin,

I glad that you can use this CaringBridge journal as an outlet for your thoughts and fears. All the best psychologists say that writing is helpful and healing in so many ways. You write...we will listen, even if we don't know what to say.

You really get to me. You are worried about how we all feel...apologizing to us. It's so hard to watch you and your family go through this...but we are here through the good and the bad always.

Praying for good to lead the way.

Love & Hope, Susan
www.ttpf.org
Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Sunday, January 20, 2008 4:27 PM CST

#$#&%$*#&%*!!!!!!!!!!! Alright, NOW I'm done.
Sigh...I'm so thankful for your "today is ok" thoughts on your recent post. It's what it all boils down to. The #*$^#( hardest lesson to learn, I think. @#*&@^#%*@&%!!!!!!!!!!!!!!! Oh heck, I'm just going to call you.

Aunt Rita <auntrita7@aol.com>
Stirling, NJ 07980 - Sunday, January 20, 2008 1:52 PM CST

Oh guys, my heart is just broken. I can normally read through caringbridge pages and hold the tears in pretty well so the kids aren't constantly asking "what's wrong?", Not this time. I know the statistics will be in your favor this time, I mean they have to be! But I am just crushed that you guys now have so much more on your already tumor filled plates. I know I'm rambling and not really getting to a point. I guess all I can say is UGH!!

Just know you are being thought of with lot's of love and prayers and I'll get my prayer warriors on board immediately!!

With love,
Sherry & Crew
www.caringbridge.org/visit/charlottemcauliffe
Sherry-Lee McAuliffe <momtocharlotte@aol.com>
Broomall, PA USA - Sunday, January 20, 2008 9:38 AM CST

Dear Kristen,

I haven't been on the computer very much lately, just taking a break from it all. So when I read your posts from the last little while, I was very shocked. I am dismayed. I am crying. I am sorry. No good words are coming to me now. Just know that I will pray for your beautiful Rosie to never need treatment. I pray it will be your turn to fall into the right side of the statistics. Stay strong and I hope your whole clan has a great time at the Great Lodge.

Wishing for peace tonight,
Lisa,
Jacob's mom
10/95-8/06
Lisa Field <efield5@yahoo.com>
West Covina, CA - Saturday, January 19, 2008 5:57 PM CST

Dear Kristen and David,
What a blow. We have prayed for Genna all along, now we add Rosie. God knew what he was doing when he gave you as parents to your great kids.
Peg and Murdock Ratten (formerly Peg Browne)
Peg Ratten <mmratten@msn.com>
Grey Court, SC USA - Saturday, January 19, 2008 10:02 AM CST

Dear Kristen, David and Gang,
Your Mom told me last night about Rosie's scan. I'm so sorry for the bad news. Rosie is such a delight. She will continue to be, helping you to laugh when you need it and giving you hope that she is a survivor too. I can't thank you enough for all the support that you have given Matt and Claire with Andrew. Know that I am just across the street if there is anything I can to do to help. I am so inspired by your honesty and love, what more could the Lord ask for? Just keep running the race and know our prayers are always with you!!!! God bless.
Love,
Kathie and John Dalessio
Kathie Dalessio <mrskathiedakessio@hotmail.com>
Warren, NJ USA - Saturday, January 19, 2008 9:35 AM CST

Morning All you are very much on my mind today and wanted to stop in to say Hi. Please know you are in my thoughts and prayers. Hugs
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Saturday, January 19, 2008 9:22 AM CST

Kristin, I am beyond words sorry that you have this new concern to deal with. I would have great difficulty separating my Jenna's story with another child of mine as well. Believe it or not, we've checked NF as a condition we would accept in our international adoption, so we may walk your path at a later date. But, for now, your family will be in my prayers. May life be uneventful from here on out.
Ann Jongsma <annjongsma@yahoo.com>
- Friday, January 18, 2008 5:22 PM CST

So happy the survivor mode has logged in - again!!! I know but hey thats how it is. Statistics are just numbers!!!!
Take care
Love and prayers
Diane
- Friday, January 18, 2008 4:53 PM CST

Hi I came across you're page and just wanted to send you some good vibes from across the ocean. My daughter has nf1 w/more than one plexiform tumors including on below her left ear. Good luck to you all
Greetings from Iceland
Hanna Sigurrós <iceq74@hotmail.com>
Iceland - Friday, January 18, 2008 4:16 PM CST

Oh Kristin,

I'm so sorry, sweetie! Tell Rozilla that Kayzilla and I are so super duper proud of her for being so brave yesterday. And that goes for mom and dad too. I'm proud of you for facing this - I think I would stick my head in the sand. And sweet Genna - reminds me of my Ethan, worrying. Give all three a ginormous,humungo hug from us, and take one for you too.

Love,
Melina and family <melina_mayo@yahoo.com>
New Castle, VA - Friday, January 18, 2008 12:28 AM CST

Keeping your family in my daily prayers.
Elaine/Angel_Wings <eshattuck1@cox.net>
- Friday, January 18, 2008 12:03 AM CST

Camiolo family, I am sorry for the news. I wish I had a few moments yesterday to stop by good old room 8 and offer a hug or two. Rosie is beautiful! And yes, you threw all of us off with the "wrong child". But, we all care so much not only for Genna but for all of you. So, all I can say is, hang in there knowing Rosie is in good hands.
Roe P.
- Friday, January 18, 2008 8:58 AM CST

Sending up lots of prayers this morning for all of you

Carol/Angel_Wings
Carol Brothers <carolab7@comcast.net>
- Friday, January 18, 2008 8:39 AM CST

OK- I am trying REALLY hard not to Cuss in Your Guestbook, but #$%$%^^&**^%$$^^& ..... Is that OK????
This is NOT COOL !!! and NOT FAIR (I Always Love it when someone remembers to acknowledge that in Our life)-
But you Know I will Be Praying- That I am Good at !!!!
Don't know What Else to do-
BT Camp is July 5th to 11th- Is that better than the last week of June ???
That would help, I Know it would- We have other NF families-
Let me know- You better decide and get it in soon- Crazy amounts of folks want to go there-
Loving you Hard from here-
love, alice, lexie's mom
www.caringbridge.org/visit/lexiewilliams

alice williams <awilgent@comcast.net>
lakeville, ma. - Friday, January 18, 2008 7:13 AM CST

Good Morning - hope the sun is shining and a new day blooms in your heart and mind. Remember each journey starts with the first small step. Such wisdom from me!!
Diane
- Friday, January 18, 2008 6:20 AM CST

Dear Kristin, I'm so so sorry. I can't think of anything else to say - I waited up till 2 am then gave up and read this first thing this morning, I am just stunned for you, and your cute funny Rosie, and her sweet, responsible big sister Genna. Praying for stable forever, now, but as you say it's such a marathon. love from Sarah

Sarah <sarahchacko@blueyonder.co.uk>
- Friday, January 18, 2008 6:16 AM CST

Good Morning....or so I hope it will be. You shed those tears, your cry out your frustration, you deserve at least that. We will be right here for all of you praying praying praying.....
Etta/Angel_Wings <grandmaettas@aol.com>
- Friday, January 18, 2008 5:31 AM CST

Morning I am so sorry to hear this latest news. Know that you are all in my thoughts and prayers.
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Friday, January 18, 2008 3:27 AM CST

You are in my thoughts and most of all, prayers. May God bless you and yours with divine healing. Sending "Angel hugs and love."

Angel w/Angel_Wings
Angel Venters
Greenville, NC USA - Thursday, January 17, 2008 11:50 PM CST

I am so sorry. I am praying for you all tonight.

Tara Carroll/Angel_Wings <taramcarroll@yahoo.com>
- Thursday, January 17, 2008 11:09 PM CST

Kristin,
So sorry to read the news. Know our thoughts and prayers are always with all of you. Through your words on Genna, we know she will be such a source of strength & love for Rosie and all of you.
Love,
Lisa

The Kennedys <latk@comcast.net>
Berkeley Heights, NJ USA - Thursday, January 17, 2008 10:27 PM CST

Kristin,

I am so saddened, sick and just angry at the senselessness of this disease. Your strong, loving family will deal with this too. It needs some time to sink in, and you need lots of questions answered by Dr. B. We are always here to support you in anyway, and at anytime. Sending you all hugs tonight.

With Love & So Much Hope, Susan
Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Thursday, January 17, 2008 9:20 PM CST

There are no words that can ease your troubles right now. Prayers are with you and know you can lean on God. Don't lose faith that HE is with you, no matter how bleak things may seem.

Joshua 1:9
Amy Darnold <darnold1212@yahoo.com>
Cairo, WV - Thursday, January 17, 2008 9:06 PM CST

fnf.
that's all I can say.
am here.
C
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Thursday, January 17, 2008 8:54 PM CST

Hi--I'm Brooke's Mom in St. Louis. I've been following your story ever since our nightmare reawakened in August. I'm so sorry your family is dealing with SO MANY challenges. You are in my thoughts and prayers.
Alisa Nickelson <StL6Pack@aol.com>
St. Louis, MO 63117 - Thursday, January 17, 2008 8:53 PM CST

I'm pissed to at NF - and am real cranky with God. But all that doesn't help - neither do the words but its all I have - unless you want me to shed bucket full of tears for you and you just get on with Surviving and Prospering as you should. Take care
love and prayers
Diane
Australia, - Thursday, January 17, 2008 8:52 PM CST

We're here for you. We're anywhere from a few miles away to hundreds of miles away. But, we're here in anyway that we can be.
Doug Setzer <dsetzer@27seconds.com>
Columbia, MD - Thursday, January 17, 2008 8:52 PM CST

I'm one of the many people who have read your blog for a few years now (even when living in Japan!), and am continuously amazed by your grace and strength throughout the General Suckiness of NF. There really aren't any brilliant words I can say to make this better for you. There are so many hundreds of people pulling for you and your family - even in the dark times. My thoughts and prayers are with you guys - always.
Tatiana
Denver, CO USA - Thursday, January 17, 2008 8:26 PM CST

Dear Kristin,

Thanks to Reca's post I realized I am behind a day. I will be stalking too the rest of the night.

Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Thursday, January 17, 2008 8:09 PM CST

Stalking you......waiting for a good scan report! I have thought about you all day!
Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
- Thursday, January 17, 2008 7:21 PM CST

Dear Kristin,

I am so glad that I checked in tonight. Honestly, I am a bit sick to my stomach for you, having to scan Rosie tomorrow. It's so wrong...as you always say "stupid NF". My thoughts and prayers will be non stop until I hear from you tomorrow night.

Your "Survivor" update was beautifully written from your heart. You are such a gifted writer. What you wrote touched so many people, and put into words the world in which you, your family (so many families), and most of all Genna live. I really think you should see about getting it published in the CHOP "Children's View" newsletter. Or at least...show it to Dr. B.

Safe drive tomorrow.

Love, Susan (Forever Timmy's Mom)
www.ttpf.org

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Thursday, January 17, 2008 4:48 PM CST

Still keeping the faith.
Diane
- Thursday, January 17, 2008 4:04 PM CST

I haven't been to visit here for a while, but I obviously should have been. Awesome post Kristin, you rock!

Keeping your family in prayer today.

Kathleen, mom to Steven and aunt to angel Kyra
San Diego, CA USA - Thursday, January 17, 2008 10:28 AM CST

I am sooo with you on the "When are they going to find a cure" for NF. Again, I am with you on the "Our tumor is not malignant". Do I feel guilty that Sarahs is not. NO WAY!! I am so Thankful for that little bit of repreive. I know we battle ( and you ) battle these tumors as if they were malignant, because they can and do grow without warning. We sit on a timebomb also.
Everytime I read about another child that has become a spirit from a brain tumor, I cry. It hurt's deep inside....and even though I may not be their parent, the fear still is there, that it may be my child. It feels like my child. I know you feel the same.
Let us be blessed that our children are doing ok right now and keep up our good thoughts and prayers.
We are very much looking forward to our Disney Trip. Any advice from Genna on what is fun to do? We have many things scheduled, but can always find time for more.

Healings and Blessings to your family,
Patti Newman <smoke2006@sbccglobal.net>
Kalamazoo, Mi USA - Thursday, January 17, 2008 8:14 AM CST

Dear Kristin,
It was so good to see all of you at Zoe's Christening. I can't believe how much I focused on Father Brian's distinct pronunciation of Zoe Sandra's name. It sounded like music to my ears.
Kristin, your last entry -- what can I say? I know the fear, the uncertainty, the unfairness of the situation, the realization that no child should be spending a day at the hospital, that she should be in school with her friends. I now also have the guilt, the faintest notion of relief that Heide mentioned, that I don't have to worry any more about cancer, pain, isolation,and unexpected questions from a very, very dear child. Please know that there will be a multitude of people with you in the waiting room tomorrow.
You spoke of survivorship. I believe that we are all survivors as long as we are fighting, as long as we are challenging this NF disease, as long as we are remembering the children that we can't see anymore, as long as we are keeping their memories alive. Yes, we will never have the "norm," although we might pray, bribe, wish, beg for it -- it is not ours for the taking. But what we have are precious, delightful kids, and what we know is that we will never stop doing everything possible to help them, no matter what their challenges might be.
Thank you for being open about your life as an NF parent, for remembering our "angels," for incorporating all of us into your struggles.

Marta Blumberg, www.caringbridge.org/visit/sandy <knitintune@hotmail.com>
Watchung, NJ USA - Wednesday, January 16, 2008 7:26 PM CST

I'm on board for the early start to the day. Prayers, prayers, prayers till I hear.
Diane
- Wednesday, January 16, 2008 4:13 PM CST

Hey Girl,
You can stalk our site as much as you want! We love it, especially now that we have a little good news. Anyway, I hope you don't mind but I have been emailing the heck out of your "poem?" "post" "letter" "life" what ever you call it, to all my friends and preface it with... "If you want to know how I am doing... here read what my friend Kristin wrote, this is exactly how I feel emotionally and physically". You hit EVERY point so in the head (even the LLBean part- BTW store is right by us :)... I don't need to say more. Maybe now they will understand. I am still going to try and find a link to this somehow from our page.
Banu -- see us at -- www.endlesshope.org
Cherry Hill, NJ - Tuesday, January 15, 2008 2:36 PM CST

My friend, you make me cry sometimes when reading your journaling and today my makeup was a waste of time putting on as I am sure I now like Ozzie Osborne! You put into words what each family goes through as we battle and try and find our way down the BT surviorship path. Our friends that don't travel as far as we do and have their healing in heaven I feel are thrilled that we continue to journey on. Life is a "new normal" for us and I don't waste my time with those who think or say, "She looks just fine." I don't have time and most days, energy to battle that one anymore. Miss G will understand someday the lengths her family went for her, right now she just knows she is loved and feels safe in the arms that wrap around her each day. We just keep on keeping on:)
Blessings, Val
Carly's Mom

Val Hiers <vhiers1@yahoo.com>
Peru, IN USA - Tuesday, January 15, 2008 1:12 PM CST

Hi
Just stopping by to say that I am thinking of you and praying for you. Have a good day.
Pat Becnel / Angel_Wings <patzbecnel@yahoo.com>
Vacherie, LA - Tuesday, January 15, 2008 10:36 AM CST

Oh Kristin,

How eloquently you managed to sum up our lives down to the smallest feeling and detail. I have to find a way to show this on our web page (if you are ok with it). Andrew, Genna & Rosie are so lucky to have such a poetic MOM :)

We are still waiting for results... Just stopped by to say Hi to all of you. I hope to see you on Thursday morning, just for a little bit at CHOP.
Banu Sheehan
Cherry Hill, NJ - Tuesday, January 15, 2008 8:20 AM CST

ok, I only had a minute....and didn't even read the whole post yet. I laughed out loud when you said Genna yawned through her spots. Drew ALWAYS yawns. It cracks me up. When he is in his choir performances, the class concert....too funny!
Love,
Me
Reca Thomasson <rmthomasson@cableone.net>
- Monday, January 14, 2008 7:00 PM CST

Attention Prayer Warriors::

The Prayer Warriors at Angel_Wings
will be having a Prayer Vigil Saturday
Jan/19th. between 8-9 pm EST for
and all the children and adults on our
prayer list and our Angel Families.
Please join us in prayer for these
families..

Angel_Wings

Etta/Angel_Wings <grandmaettas@aol.com>
- Monday, January 14, 2008 5:23 PM CST

Oh Kristin Kristin Kristin.

That was absolutely, brilliantly, exquisitely BEAUTIFUL, PAINFUL, and HONEST!! Wow, what a wonderful entry!!! I have to tell you ... I first read excerpts of it on another CB site, and all it said was "Kristin, thanks for letting me quote from G's CB :)" ... Not a whole lot to go on (I visit a LOT of CB sites!!) lol ... But I knew it had to be you, and I was right.

Seriously, thank you. I don't think there's a sick child's Mom or Dad out there that wouldn't relate to everything you wrote. And you wrote it so well and sensibly.

What you talk about are EXACTLY some of the reasons why I don't go to the PBT list much anymore. And, believe it or not, it's not because I'm so overcome with grief and I can't handle listening to other parents talking about their surviving children. It's because I (and this is going to sound really weird), but I sometimes feel a bit guilty because I'm not "in the trenches" anymore. Our journey is over, and we know our ending. It's not the one we would've preferred, but the PMS, the gut-wrenching fears, the middle of the night panic attacks ... I don't have those anymore (well, maybe the middle of the night panic attacks, but that's just because i'm stressed).

Now I guess our "survivorship" has moved onto the next level. Jessica's journey is over, but her family (us) has been left behind to try and survive our life without her. But we at least have the knowledge that cancer, and that ($*@%&^@ brain tumor cannot hurt her ever again.

I didn't mean to ramble on your guestbook (I do enough of that on Jessica's CB lol) ... But I just wanted you to know how touched I was by what you wrote. I hate that I can't get update alerts for these legacy sites (anyone know how I can get update emails, if it's possible?) I don't get over here near as often as I'd like to.

I hope you all have a nice week, and thank you for all you do.

~Heide
m/o ^Jessica^; forever 17
http://caringbridge.org/visit/jessicarandall
Heide
Marshall, VA USA - Monday, January 14, 2008 1:42 PM CST

Hi Kristin & Genna,
What a touching, beautiful tribute on Genna's and your family's journey. Genna and all of you are always in our thoughts and prayers. We do check on you often, but wanted to tell you this time that your post was so amazing.
Love,
Lisa & Sami
The Kennedys <latk@comcast.net>
Berkeley Heights, NJ USA - Monday, January 14, 2008 9:53 AM CST

Kristin,
I found Genna's website from the Yahoo groups. You have put every feeling and emotion into words regarding stable MRI's. The guilt about not being happier with stable results really hit home!!!! We are also looking at the future without NED. It just doesn't seem to be in the cards. Thank you for your beautiful words and for making me feel less alone!!!! Keep the faith my friend.
Christine m/o Danny 3yo PMA
Christine <ckelmarq@verizon.net>
Stewart Manor, NY USA - Monday, January 14, 2008 9:11 AM CST

My kids (esp the older ones) still ask about Genna. It's usually a random question, but the fact that she flits about in their hearts speaks volumes. Miriam asked after her today (and about Rosie & Andrew).
Keep hanging in there, my friend.
See you soon.
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Sunday, January 13, 2008 5:10 PM CST

Dear Kristin,

By far, this has the be your best post ever. (Maybe it's because you are saying exactly what I feel.)

Gosh...I could just clip and paste this on Jordan's journal and just change the names.

"So now I feel guilty when I don’t feel happy enough about “stable”. I try, I really do. It’s so much better than the alternative…but the scars are so deep now, I know that stable can shift in an instant and we’ll be sliding down into the pit again. I want a cure."

My sentiments precisely...

You are such a gifted writer, and one AMAZING mom with 3 great kids!

So blessed to know you,

Susan
Jordan's Site <Susan2956@yahoo.com>
On the journey with you guys......................................., - Sunday, January 13, 2008 5:09 PM CST

Hi Cams!
Joey LOVED his jokes from Miss Rosie, he laughed at all of them. He just asked me to read them to Matt and laughed again. He is doing better, we still have the tooth. We may be doing something different, I don't know if I'll ever get him back to get a tooth pulled again! And the way his x-rays looked, he may be in for lots of trips to the dentist! Ugh!

A couple jokes from Joey,
Knock, knock.
Who's There?
Rosie.
Rosie who?
Rosie jumps in the water rose.

Knock, knock.
Who's there?
Kally.
Kally who?
Kally You.
(then he says, "Ha ha that's a funny one huh!")

Anyway, take care!
We are heading to Spokane at 6 am tomorrow! ugh and huge yikes!

Love,
Reca
Reca Thomasson <rmthomasson@cableone.net>
Lewiston, ID - Thursday, January 10, 2008 8:49 PM CST

Hi Kristin,

So happy to read that you and Dave got to spend some good quality time together. You both need and deserve it very much. It sounds like the kids had a nice mini vacation. I remember nothing cooler then indoor hotel swimming pools...especially when it's freezing outside.

We are in for the Coffeehouse. Will try to bring some friends along too.

Jeanne Wallace has an amazing reputation. I know she is pricey but I think it's a great idea for so many reasons.

Okay...is it January here in New Jersey or what? It's 65 degrees outside!

I will check back soon.

Hugs to Genna. Wow, soon I will get to get a real hug again!

Love, Susan (Forever Timmy's Mom)

Susan Pauxtis <SusanPaux@yahoo.com>
Middletown, NJ USA - Tuesday, January 8, 2008 12:08 AM CST

Keep up with the Coffeehouse...one of these years I WILL show up! Like Marta, I too, would bid in an auction for daily/weekly/monthly cookie deliveries..... maybe I'll just have to place a one time order! I will see if I can come up with something for your auction as well. And if you are having the kids do the puzzle pieces again, please let me know and I will ensure that Ryan gets his done this year! Happy planning - I know what you mean about needing busy.
Kelly
SK Canada - Tuesday, January 8, 2008 9:32 AM CST

Just a quick note to say that I'm still here, still reading, and wanted to wish you all a very happy new year!

xoxox
Miranda <nostalgic.one@gmail.com>
London, England - Saturday, January 5, 2008 11:20 AM CST

great to see you today. why is it always so long in between? sigh. life is rich... and maybe getting the better of us as we age...
and ugh about the beat the toaster prize...but CONGRATS to Genna for doing it!
Christine <mithril1971@patmedia.net>
Hillsborough, NJ USA - Friday, January 4, 2008 8:02 PM CST

Hi,
Just stopping by to let you know that I am praying for you. I hope that you will have a good day.
Pat Becnel / Angel_Wings
Pat Becnel <patzbecnel@yahoo.com>
Vacherie, LA - Thursday, January 3, 2008 5:21 AM CST

Dear Kristin,
You make me tired just reading your last entry! What a pleasure to get a glimpse into your frazzled and excited protrayal of a Camiolo Christmas. You allow us all to feel a part of the joy.
I'm glad your kids liked the gifts --Sandra always tried to remember what every little child on her list wanted, and often spent hours looking for the items. I miss the excitement of leaving gifts at the houses while everyone was at church. She made me realize how important the little people were.
Count me in on the coffee house. I will knit something for the silent auction. And your cookies -- I think you should auction off a cookie delivery plan for the whole year (sort of like a fruit of the month plan), and, believe me, I will try to outbid everyone else for them.
Have a peaceful, healthy New Year!
Marta Blumberg <knitintune@hotmail.com>
Watchung, NJ USA - Wednesday, January 2, 2008 0:04 AM CST

Happy New Year!
caringbridge.org/visit/quiltsofhope

Angel_wings
Jaime
- Tuesday, January 1, 2008 8:08 PM CST

Penciling in March 1st. We wouldn't want to miss that show-stopping entertainment...and all those cookies.
Kelley Schmidt <kschmidt71@verizon.net>
Feasterville, PA USA - Tuesday, January 1, 2008 6:46 PM CST

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