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I only knew Baily as an infant, but I loved him so much. Family should never leave one another. Always stay in toucn
Debie (aunt debbie) Haskell <haskelldeb@gmail.com>
Gilford, NH US - Thursday, October 25, 2012 3:11 PM CDT
Remembering Bailey today on his tenth birthday. Thinking of you always Christine, and I hope that you are OK.
Virginia
virginia <virginiabarstow@onetel.com>
Wales, UK - Monday, September 22, 2008 7:17 AM CDT
Christine
It was good to hear from you. I hope you all are doing well. Please know we still think of your family & pray for you often.
Carrie Stroud (Camden's mom) <dstroud2@ec.rr.com>
Morehead City, NC United States - Monday, May 5, 2008 10:12 PM CDT
Somebody was talking about Harry Potter today and it reminded me of Bailey. Just wanted to let you know that I was thinking about him and you all today.
Sonja Hickman <sonjahickman@yahoo.com>
- Sunday, February 24, 2008 2:39 PM CST
Thinking of you today. Praying that this new year will bring you much peace, comfort, joy and love.
Stacey Krause (mom to Kaylee in Heaven & Cassie) <kayleespromise@msn.com>
- Wednesday, January 23, 2008 9:07 AM CST
May God provide your family with a comforting, blessed, & peaceful 2008 - we think of you often.
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC - Tuesday, January 1, 2008 10:52 PM CST
Thinking of you today..... Praying for your strength. Things just are not the same without our little ones. It seem that each new day brings a new challenge.... missing our babies. I know God is holding us close and He continues to comfort us. I just miss them....
Anyway, take care. I pray that you have a wonderful Christmas with snow!!
All my love,
Stacey Krause (mom to Kaylee in Heaven & Cassie) <kayleespromise@msn.com>
- Friday, December 7, 2007 9:32 AM CST
Thinking of you all especially today. As the Halloween season approaches, I always think back to our time on 5200 2 years ago. I'm so sorry that things did not turn out the way you or any of us had hoped. I can't even imagine how difficult some days must be. Please know that you are thought of & prayed for - that God will lift your spirits & provide you with happy memories.
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Friday, October 26, 2007 12:25 AM CDT
I miss you and think about you all the time. your in my prayer's.
Love
Patty,Randy& Aubrie :)
Patricia Politte <trishpolitte@hotmail.com>
Rochester, NH usa - Tuesday, July 24, 2007 10:49 PM CDT
Just checking in on you guys. I continue to pray for you all. Keep up the singing & the music. Britta just might decide she likes it one day. :)
Carrie Stroud (mom to Camden)
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Friday, July 20, 2007 0:22 AM CDT
I'm stopping by from Joseph Brown's CB site. What a beautiful memory you & your family made.....you described it so well, thank you for sharing it. I chuckled to myself several times while reading it :)
D O D <schlbusdrvr@bellsouth.net>
- Thursday, July 19, 2007 1:07 PM CDT
Just stopping by to say hi. Hope you are having a good day.
Heather Thompson <htast@aol.com>
- Sunday, June 10, 2007 6:22 PM CDT
Happy Mother's Day Sweet Christine!
Just wanted you to know that I was thinking of you today. I pray today will be filled with much love, joy, and peace. I pray that you will feel the presence of God and Bailey holding you close.
All my to you today and always,
(mom to Kaylee in Heaven & Cassie)
Stacey Krause <kayleespromise@msn.com>
- Sunday, May 13, 2007 4:40 AM CDT
Stopping by to let you know we are still thinking of you & your family each day. We're praying that each day is better than the last.
Carrie Stroud(mom to Camden) <dstroud2@ec.rr.com>
Morehead City, NC United States - Sunday, May 6, 2007 12:07 AM CDT
Just stoppimg by to say hello. Remembering our time together at Duke... it was almost this time last year we were having lunch and you came to visit Kaylee on 5200, the weekend of the Walk of Heroes. I hope you are doing well and I pray that everyday is better than the day before. Miss you and praying for God's grace to hold you close.
All my love,
Stacey Krause (mom to Kaylee in Heaven) <kayleespromise@msn.com>
- Monday, April 23, 2007 10:08 AM CDT
Thinking of you & Bailey today. Prayers are still being sent your way & the continually will from our family to yours. You're always close in our hearts.
The Strouds
Carrie Stroud(mom to Camden) <dstroud2@ec.rr.com>
Morehead City, NC United States - Wednesday, April 11, 2007 9:36 PM CDT
Just wanted to stop by and say that you will always be "Bailey's Mom" to me. I will never forget him or his loving and devoted mom.
Nurse Sonja <sonjahickman@yahoo.com>
- Wednesday, April 4, 2007 11:03 AM CDT
You are never far from my thoughts...
Hoping you will be heading to NC for the walk again this year. If so, dinner at my house after the walk!!
Sending hugs...
With love and HOPE,
caringbridge.org/nj/ashleigh.ryann
Michelle Gwin <moocow517@comcast.net>
Durham, NC USA - Monday, April 2, 2007 5:16 PM CDT
Dear Christine,
I never knew you as "Baileys Mom" so it would be hard for me to call you that but I do understand. I know the tears well that come time to time still 6 years later after Patrick's death. We just celebrated Patrick's 7th birthday 3 days ago. It is hard to believe my little guy would have been 7 and would be a first grader at Pine Tree. The week was tough as I relived every day leading up to his early delivery. Elizabeth who is almost 5 and never knew her brother talks about him a lot because we talk about him a lot. It is nice to be so open about him and I also understand how you feel that as time goes on, maybe he will be forgotten especially by the community. I definately feel that way. It looks like you have a great support network from your friends at Duke and that is terrific. You know I am here for you. Fondly, "Patrick's Mom"
Lisa Cote <spcote@adelphia.net>
- Sunday, March 18, 2007 6:58 AM CDT
Hope all of your family is doing well & you are still enjoying some snow. We haven't seen one bit here in eastern NC this year. I wish you guys could send one "dusting" our way before spring.
Forever remembering you & Bailey
Carrie (mom to Camden)
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Monday, March 12, 2007 10:30 PM CDT
Thinking of you today and missing our sweet boys.
Love,
Nina
Nina Brown <Bobbymarie303@aol.com>
Charlotte, NC US - Friday, February 9, 2007 8:02 AM CST
Christine
Bailey will never be forgotten by us. I wanted you to know I have saved some pics of all the kids we met along our journey since Camden was so little when he went through all of this. I want him to know the kids he might one day meet & the kids watching over him from heaven. I don't think you'd be normal if you didn't have lots of tears - you're a good mom - Bailey's mom & nothing will ever change that. Love you-
Carrie (mom to Camden)
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Wednesday, February 7, 2007 9:05 PM CST
Hey, Bailey's Mom. Just stopping by to let you know that I was listening. I hope you know that I lurk around a bit and think of you and Bailey often. I do hope you come to the Rainbow of Heroes walk this year and of course dinner at my house afterwards...that will be a tradition, now that I am living here. Of course, we were all a bit crazy that night so we might have scared you away. I also wanted to let you know that you can always stop by the Krabbe message board...there are several other leukodystrophy families there and they are real good listeners also.
Sending a ton of hugs to the best Bailey's mom ever!!!
With HOPE,
Michelle
caringbridge.org/nj/ashleigh.ryann
* <michelle.gwin@us.army.mil>
Durham, NC USA - Tuesday, February 6, 2007 9:22 PM CST
Dear Christine
Thank you for checking in on Mason and thinking of us - we think of you and pray for you each day. I was so touched by your entry of the things you miss about Bailey, thank you for being so real and sharing your heart to all of us. My favorite memory of Bailey is him and his Harry Potter glasses, I still find myself crying when I unexpectingly run across a pair of black glasses in a store, I instantly think of him and of you. I pray that God will continue to keep you in His grace and surround you with His love and presence each day. Thinking of you and sending hugs to you!
In His Love & Care
Becky Jenkins - Mason's Mommy
www.meetmason.com
Becky Jenkins <meetmason@gmail.com>
- Sunday, February 4, 2007 5:48 PM CST
Christina,
I can't understand in the way that you do because I still have Graci; but in the sence of her sickness and disease I do. People are afraid to ask or just presume certian things which is worse than just saying they don't understand. Or what I think must be the most hated line among all of us "oh I understand" No, you don't understand. Honesty is always better, at least that seems to be so for most parents of ill children.
Bailey, and all the little angels up in heaven are the ones who are blessed, their pain is over, their illness healed. No more proceedures, medications or doctors appointments. But there poor families are the ones who must miss their bright smiles and precious memories of days passed.
Hold your memories close, teach your children to cherish them too. And with love you will all grow closer every day.
We love you all and really miss our transplant family.
Naomi Esparza (transplant mom) www.caringbridge.com/visit/gracielaesparza <gracitransplant@hotmail.com>
- Friday, February 2, 2007 4:34 PM CST
Thinking of you today... I love you so much... you are a wonderful mother to all of your babies... You will forever be Bailey's mom... the best mom ever!!!! I agree with you... for every smile there is a tear (actually several). It has been almost 8 months since Kaylee went to be with Jesus and I think I miss her more now than ever. Take care of you and know that I am here. Sending you a great big hug and a prayer across the US.
Love always,
Stacey Krause (mom to Kaylee in Heaven)
- Friday, February 2, 2007 12:11 AM CST
Dear Bailey's Mom- Thanks for checking on my boys. I still check baileys website every morning and am so happy when I see a new entry to hear how you and the family are doing. I can't imagine how you feel each day but you have inspired me so much as you keep your head up each day and face whatever is thrown at you. i know Bailey is looking down and so proud of his mommy! I will be going to the Rainbow Walk this year- maybe we can actually see each other this time ! Have a great weekend!
Much Love- Ashtin and Braden's mom :) (DAna)
www.caringbridge.org/visit/ashtinandbraden
Dana Jobst <dajobst@cox.net>
Hampton, VA - Friday, February 2, 2007 7:55 AM CST
Christine,
I'm so glad you signed our guestbook. When we returned home and returned our borrowed laptops to their owners, all of our friends' addresses went with them. I've been hunting for yours ever since. I pray for you often. Thank you for remembering us and being such a caring friend.
Much love,
Susan Fleming
www.caringbridge.org/al/micah
Susan Fleming <travisandsusan@gmail.com>
Anniston, AL - Wednesday, January 24, 2007 4:21 PM CST
I hope your family has a wonderful New Year! Still thinking of you guys all the time.
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Tuesday, January 9, 2007 7:36 PM CST
Happy New Year!!!! I pray that 2007 will be a wonderful year for you and your beautiful family!!! I love you and hope you had a great Christmas and Blessed New Year!!! Hope to talk to you soon.
All my love,
Stacey Krause (mom to Kaylee in Heaven) <kayleespromise@msn.com>
- Tuesday, January 2, 2007 0:57 AM CST
We pray that you have a blessed holiday season. May you feel the prayers & comfort from all of us around you that love you so much!
Carrie (mom to Camden)
http://www.caringbridge.org/visit/camdenstroud
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Thursday, December 21, 2006 4:05 PM CST
I hope somehow your family can enjoy the holidays. We think about you all so much and especially this time of the year.
Heather Thompson <htast@aol.com>
- Wednesday, December 20, 2006 8:27 PM CST
Hi Christine.
Looks like you will be getting some snow....finally! Thinking about you and your family. I just checked out Donovan's site...what a cutie!Pyayers for all...
XXX,s Barbara
Barbara Forslind, Nana to Jason, Kyle and Angel Mitchell <baforslind@net1plus.com>
Pepperell, Ma. - Saturday, December 2, 2006 6:38 AM CST
My mother invited the kids and I to watch a holiday parade with her in Norway, ME. First in line were the fire and rescue vehicles. Within minutes I was in tears. Mom's thoughts were I was wishing Annika was here to see it. That was my second thought. Picturing Bailey in one of those trucks was my first. I miss him too. Hugs to all, Sonya
Sonya Porter <sm2porter@yahoo.com>
Ctr. Conway, NH USA - Sunday, November 26, 2006 1:50 PM CST
Happy Thanksgiving!!! I hope you have wonderful day today and I pray that you are filled with the peace that only God can give. I love you and praying for you today....
Sending you all my love and a great big hug!!
Stacey Krause (mom to Kaylee in Heaven)
- Thursday, November 23, 2006 2:28 AM CST
Christine - please know that Bailey and your family are always in our hearts and minds. Happy Belated 16th to Brandon. You make us proud!
Laura Jawitz
Center Conway, NH USA - Wednesday, November 22, 2006 4:15 PM CST
Christine
Keeping you close in my heart & prayers this week
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Thursday, November 16, 2006 5:51 PM CST
Thinking of Bailey today and every day.
Virginia
- Wednesday, November 15, 2006 9:52 AM CST
Christine, many thoughts and prayers are with you this day. My Son Terry passed away 5-3-2004 of ALD. He was 37 years old.
It is still all so new to me, memories are forever.
Jan R
- Wednesday, November 15, 2006 9:32 AM CST
My Dear Sweet Friend Christine,
You are in my thoughts and in my prayers. I know today will be filled with memories of a year ago.... your last moments with your precious Bailey. Remember, He is no longer in pain and I bet that He and Kaylee are playing "tag" or looking at books together like they did that day in Dr. Greene's office. I love you and I am here if you need me. Call me if you are up to it. I pray that today will be a day filled with much peace and supernatural grace. I pray that your memories will be sweet....
All my love,
Stacey Krause (mom to Kaylee in Heaven) <kayleespromise@msn.com>
- Wednesday, November 15, 2006 1:44 AM CST
Thank you so much for writing to Brendan. We think about you all often. In answer to you question, yes they threw money again when Brendan was discharged. He is doing well. We don't know what the future holds we are just taking it day by day. Please know you continue to be in our thoughts and prayers.
Paula and Brendan <leesburglackeys@aol.com>
- Monday, November 13, 2006 7:54 PM CST
Just wanting you to know that I am lifting your family up in prayer this week. I know that there are lots of memories of this week last year. You have been such an encouragement to me this past year and I am thankful for you and your faith. May God richly bless you this week and continue to give you comfort.
In His Love,
Linda Tamblyn (Micah's MaMon)
Linda Tamblyn <tmtlht1973@yahoo.com>
Swainsboro, GA USA - Sunday, November 12, 2006 9:51 PM CST
It's been quite a while since I've written or spoken with you, Chris. I think of you and the family often and smile at Bailey's picture every day. I told my fourth grade class about Bailey today and we had a great discussion about not taking anything for granted and living every day to its fullest!
Courtney Robinson <courtrobin@comcast.net>
Frisco, CO - Thursday, November 9, 2006 7:24 PM CST
Hi Cristine,
I am sorry it took me so long to stop by, and I thank you for visiting Jack's site. I have been reading up on sweet Bailey, and all that your family has endured, and I am in tears. I am so afraid, Christine, of this all happening to Jack. You so beautifully described everything, so honestly. How do you still breathe? Sometimes I can't breathe now, I can't imagine going on if I lost Jack. I HATE these disease's. But, I know that we have been blessed to be parents of such beautiful, brave, and special little souls. Thank you for sharing Bailey's life. I will be praying for all of you.....
Much Love,
Brooke Palamaro (Jack's mom - Alexander's Disease)
www.ourbeautifulboy.com
Brooke Palamaro <peterpalamaro@optonline.net>
Sayville, NY - Thursday, November 9, 2006 9:06 AM CST
Christine
I'm thinking of you so much this week - I know it's not easy & I'm not going to pretend to have the perfect words to say. I'll just keep praying & let you know that I love you!
Carrie (mom to Camden)
Carrie (mom to Camden) <dstroud2@ec.rr.com>
Morehead City, NC United States - Tuesday, November 7, 2006 9:18 PM CST
Thinking of you as always...call me if you want to talk or just cry!!!! I LOVE YOU......Praying for better days....
Love,
Stacey Krause (mom to Kaylee in Heaven) www.caringbridge.org/visit/kayleekrause <kayleespromise@msn.com>
- Sunday, November 5, 2006 11:25 PM CST
Just stopping by to say Hello and to let you know that I was thinking of you. I pray today is a good day for you. I know that you are being bombarded with the memories of a year ago.... reliving the days as if it were today. I am praying for great grace and strength for you today and the days ahead. I love you and I am here reliving them with you...
Stacey Krause (mom to Kaylee in Heaven) www.caringbridge.org/visit/kayleekrause
- Thursday, November 2, 2006 1:42 PM CST
Happy belated Birthday Brandon. You sure sound like a great big brother. I'm sure that Bailey is looking down on you and is so very proud.
Heather Thompson <htast@aol.com>
Wilmington, - Wednesday, November 1, 2006 7:30 PM CST
Happy Belated Birthday, Brandon.
From your Mom's words about you....you are an extrodinary young man.
XXX's, Barbara
Barbara Forslind, Nana to Jason, Kyle nad Angel Mitchell <baforslind@net1plus.com>
Pepperell, Ma. - Saturday, October 28, 2006 1:13 PM CDT
Hi Chris, Just want you to know I am thinking of you. I often drive by you here in town and wonder how you are. Hope someday we can catch up with each other again.
Lisa Cote <spcote@adelphia.net>
Conway, NH - Saturday, October 21, 2006 7:24 AM CDT
happy late birthday brandon!!!
Lea <skigurl142002@yahoo.com>
- Monday, October 16, 2006 7:57 PM CDT
It's hard to believe for me that it's almost been a year since we walked those halls of 5200 together. It seems like the fall is bringing back floods of memories for me, as I know it has to be for you as well. I'm saying extra prayers for you these days - I know some days are tough. Sending lots of love from NC.
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Saturday, October 7, 2006 5:38 PM CDT
I'm sorry I missed Bailey's birthday. I know it was hard for you. I continue to lift you up in prayer.
In His Love,
Linda Tamblyn (Micah's MaMon)
Linda Tamblyn <tmtlht1973@yahoo.com>
Swainsboro, GA USA - Monday, October 2, 2006 6:46 PM CDT
Dear Christine,
I often wonder how you are doing when I'm not actually talking to you. Every so often I read the journal and am amazed by your ability to express yourself. I have a hard time getting past the "I'm ok" or "It's a hard day". I thought of your family often last weekend at Popham. Tavon celebrated his first birthday and, as joyous as that was, there was an emptiness in my heart for missing that milestone with Annika. A kiss to Annika & Bailey.
Lots of love & hugs to your family.
Sonya Porter <sm2porter@yahoo.com>
Ctr. Conway, NH USA - Friday, September 29, 2006 10:26 PM CDT
Dear Chris and family,
I am just writing to say that I hope everything is going well at home, and that I was thinking about Bailey today and your time at Duke. I wanted to let you know that I am still always thinking of you and the time I spent with your inspiring beautiful son.
Warm Regards,
Tri
Tri Hiremath <tgh5@duke.edu>
Durham, NC - Sunday, September 24, 2006 5:47 PM CDT
Hi Christine,
Bailey is a year older than Angel Mitchell. I can picture the boys getting into all kinds of mischief and having lots of giggles.
God bless,
Barbara
Nana to Jason, Kyle and Angel Mitchell
Barbara Forslind <baforslind@net1plus.com>
Pepperell, Massachusetts USA - Sunday, September 24, 2006 8:20 AM CDT
Christine & Family
I know that yesterday had to be a tough day. We are praying for you all the time - for strength, for courage, for the ability to continue on with a positive outlook. Please know your sweet boy is missed & thought of often. We love you guys!
The Strouds
http://www.caringbridge.org/visit/camdenstroud
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Saturday, September 23, 2006 8:12 AM CDT
Hey Christine- i know I haven't written in a while ( you are so faithful to your guestbook entries) but I still check the website all of the time for updates of your family. i am praying for you today as I do everyday- I know today is a hard day for your whole family. You are such an inspiration to me and i am so blessed to know you.
HAPPY BIRTHDAY BAILEY! We all miss you.
Love,
Dana JObst
www.caringbridge.org/visit/ashtinandbraden
Dana Jobst <dajobst@cox.net>
hampton, VA - Friday, September 22, 2006 9:12 PM CDT
Hi Christine,
You may remember that today is also my oldest grandaughters birthday. Because of this I did remember that today was Bailey's too. This morning I sent my thoughts to him for a special day. I know this is a tough day for you.
Love,
Bette
Bette Tibbetts <b_tbbtts@sau9.org>
Ctr. Conway, NH - Friday, September 22, 2006 9:30 AM CDT
Hi, Todd, Chris, Brandon and Britta
I am a former EMT student of Todd's and I worked with Brandon for a summer at Story Land. I am just writing to say the I think your family often. I especially thought Bailey and the family and started to cry during my Anatomy and Physiology class the other day. In class we were talking of the disease. I am in Nursing school now and I only wanted to say that I'm think of you and I only can hope to have an impact on peoples lives like your family has on mine. Thank you Todd, for being and amazing teacher during your families time of need. I greatly appericate at it. It is good to hear that you are doing well. God Bless you all. Lea
Lea Guptill <skigurl142002@yahoo.com>
ME USA - Friday, September 15, 2006 9:21 PM CDT
Dear Christine,
Just dropping by to say Hello and to let you know that I am thinking of you. I pray you are having a wonderful day.... I love you and appreciate you....
Sending much love to you and your family,
Stacey Krause
Stacey Krause <kayleespromise@msn.com>
- Thursday, September 7, 2006 10:37 AM CDT
Here are hugs for Todd, Chris, Brandon, Britta and Bailey. We love you.
Grammie and Grandpa
Kittery, ME USA - Wednesday, September 6, 2006 3:19 PM CDT
Hi Christine
Thinking of you today and praying for you as always and sending all of our love to you.
In His Love & Care
Becky Jenkins - Mason's Mom
www.meetmason.com
Becky Jenkins <meetmason@gmail.com>
- Tuesday, September 5, 2006 12:53 AM CDT
Sending hugs from North Carolina.
www.caringbridge.org/visit/gagethompson
Heather Thompson <Htast@aol.com>
- Saturday, August 26, 2006 7:40 PM CDT
Thinking of you and remembering my little buddy today and always.
Love,
Sonja
Sonja Hickman <sonjahickman@yahoo.com>
- Tuesday, August 22, 2006 11:46 AM CDT
Christine
I just wanted to stop by because you've been on my mind today. I pray today is a good day -
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Monday, August 21, 2006 9:36 PM CDT
Just stopping in to say hi. Hope today is a good day!
www.caringbridge.org/visit/gagethompson
Heather thompson <htast@aol.com>
- Tuesday, August 8, 2006 7:24 AM CDT
Hoping today is a good day for your family - you are in our prayers every day!
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Wednesday, August 2, 2006 8:06 AM CDT
hey mom,
ive never gotten a chance to check out the site and you left the computer on so...
i think you are the most strong person in this family. you try so hard to make shure every one isokay before you take care of yourself.
LOVE
~Brandon
Brandon <br_howard@hotmail.com>
- Thursday, July 20, 2006 12:37 AM CDT
Sweet Christine,
Just wanted you to know that I was thinking of you. You and I have more in common than I think even we realize. I cherish the time we spent together during your visit for the Rainbow Walk of Heros. It was a good day. Thank you for checking in and signing Kaylee's guest book. You are so kind and I appreciate you more than you know. Let's continue to stay in touch.
Sending you lots of love from across the USA,
Stacey Krause (mom to Kaylee in Heaven)....one day you and I will be there too and we will get to hold our little ones again!!!
Stacey Krause <kayleespromise@msn.com>
Wildomar, CA - Wednesday, July 19, 2006 7:07 PM CDT
I'm so glad that you & Britta were able to go see Thomas! We continue to pray for you each day. Your words are always so inspiring & positive. Your wonderful outlook on life inspires many people - including me. Sending lots of love -
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Sunday, July 16, 2006 5:17 PM CDT
I can't believe that 8 months has already passed by. I can vividly remember seeing you and Bailey on 5200 for the first time. Gage was riding the tractor, as he always did, and Bailey was so interested in it & all of the other ride on toys. In some ways it seems like a lifetime ago but all of the memories are so fresh. I'm so glad that Jetta got to visit Thomas the Tank.
Heather Thompson <htast@aol.com>
- Sunday, July 16, 2006 6:22 AM CDT
Just wanted to let you know that we are thinking of you. Thanks for always checking in on Gage. Hope you and your family are doing well. Have a good night.
Heather Thompson <htast@aol.com>
- Wednesday, June 21, 2006 7:54 PM CDT
Christine
Thinking of you today, as I do many days. Like you, I have learned so much from each of the little angels we have met - especially your Bailey.
Carrie & Camden Stroud
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Friday, June 9, 2006 10:38 PM CDT
We often come to this website and give Bailey a hug, it helps. The little ones give us gifts greater than their sizes. Our hearts go out to all those parents and families who look at their loved ones and pray for life, for life is exactly what the little guys have given us. We miss you, but we are grateful for having known you.
With love, Grammie and Grandpa Sauter
Kittery, Maine USA - Wednesday, June 7, 2006 10:42 AM CDT
Hi! This is Missy from the PICU at Duke. I cared for Bailey and I think of Bailey and you often. As I read the journals you have posted through your journey with Bailey and after-in celebration of his life, I rejoice with you that you carry him with you in your heart and that your life is still full of love, joy, and happiness. I thank God I was allowed to be part of Bailey's life!
Missy Enoch, RN <lunarclyps@aol.com>
Durham, NC - Saturday, May 20, 2006 9:07 PM CDT
Just wanted you to know I was thinking of you. I love you Christine and I am always here if you ever need me. Call me day or night. I am praying for great peace....a peace that surpasses all understanding.... and much strength for you. We will forever share a bond....and I hold you and Bailey close to my heart always.
sending you a great big hug,
stacey
stacey krause <kayleespromise@msn.com>
- Tuesday, May 16, 2006 6:42 PM CDT
Happy Mother's Day Christine!
Just a note to say that we are thinking of you today. Hope you have a blessed day!
It was so good to see you last weekend and spend some time with you. Thank you for visiting with us while you were here. You are a blessing and I am thankful to know you!
Sending you lots of love and prayers too!
Stacey & Kaylee Krause
stacey krause <kayleespromise@msn.com>
- Sunday, May 14, 2006 11:31 AM CDT
Christine
I am so thankful that you were able to go to the walk & honor Bailey by walking. Thinking of you & praying for you guys every day --
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Saturday, May 13, 2006 10:20 PM CDT
Hi Chris, Still think of you all the time. I so understand the closeness you felt to Bailey as you walked the well known paths of the hospital during your visit. I am so happy that you were able to go down to Duke and reconnect with old friends. Keep in touch! P.S. Happy Mother's Day!
Lisa Cote <spcote@adelphia.net>
Conway, NH - Wednesday, May 10, 2006 6:55 PM CDT
Christine,
It was good to see you the other night. Bailey was so special to me and I was glad to see that you were able to come and represent one of my greatest heroes at the walk. I know he continues to be so proud of his mom and I am too!
Love,
Sonja
Sonja <Sonjahickman@yahoo.com>
- Monday, May 8, 2006 7:24 PM CDT
Hi Christine,
Kelly Brown just told me that you are in town (Durham) for the walk. Our family won't arrive until tomorrow evening, but I wanted to read up a bit on Bailey's life and "get to know you" before we meet tomorrow. What a beautiful boy Bailey is! I look forward to giving you a big hug (the kind that only fellow leukodystrophy families know how to give) and talking with you in person. See you soon.
Peace and blessings,
D'Anne White (and Marshall & Jackson too)
www.jacksonwhite.com
D'Anne White <mama@jacksonwhite.com>
Concord, CA 94518 - Friday, May 5, 2006 4:10 PM CDT
Hey Christine- Just wanted you to know that I am thinking of you and still check on you all the time. I hope you have been doing well. Sending many hugs and prayers your way!
Love, Dana and Braden Jobst
www.caringbridge.org/visit/ashtinandbraden
Dana Jobst <dajobst@cox.net>
- Saturday, April 1, 2006 8:51 AM CST
Christine, It was so good to hear from you!! Thanks for e-mailing me. I just wanted to say HI and let you know that I was checking in on you.
Have a wonderful day,
Stacey
Stacey Krause www.caringbridge.org/visit/kayleekrause <kayleespromise@msn.com>
Wildomar, CA - Sunday, March 12, 2006 5:10 AM CST
Sending lots of love, hugs and prayers your way! We think of you always!
Love, Stacey & Kaylee Krause
Stacey Krause <kayleespromise@msn.com>
Wildomar, CA - Monday, March 6, 2006 10:42 AM CST
just checking in and wondering how you are doing. We think of you so often. Praying for you today.
all our love, Stacey & Kaylee Krause www.caringbridge.org/visit/kayleekrause
Stacey Krause www.caringbridge.org/visit/kayleekrause <kayleespromise@msn.com>
Wildomar, CA - Sunday, February 26, 2006 10:42 AM CST
Goodness I think we all had you on our mind at the same time...Christina I hope all is going well your way and you are getting have good family time...Thinking of you so often...
melissa Rasmussem (all-kids) www.caringbridge.org/in/babydonovan <meldardyl2000@yahoo.com>
- Tuesday, February 21, 2006 10:09 PM CST
Christine & Family
I had you on my mind tonight & I am still praying for your strength each day. Sending you lots of hugs from NC!!
Carrie Stroud (mom of Camden - former 5200)
http://www.caringbridge.org/visit/camdenstroud
Carrie Stroud <dstroud2@ec.rr.com>
Morehead City, NC United States - Sunday, February 19, 2006 10:55 PM CST
Still thinking of you and praying for you. You and Bailey touched our hearts forever. Much love to you and your family,
Stacey, Scott, Cassie & Kaylee Krause
Stacey Krause www.caringbridge.org/visit/kayleekrause <kayleespromise@msn.com>
Wildomar, CA - Saturday, February 18, 2006 10:35 AM CST
Just wanted you to know that I was thinking of you today as I do so many days. Sending lots of love your way, Stacey & Kaylee Krause
Stacey Krause www.caringbridge.org/visit/kayleekrause <kayleespromise@msn.com>
Wildomar, CA - Wednesday, February 15, 2006 11:05 AM CST
Hi christine and family I love that poem in the begining that is so sweet. Thanks for keeping in touch. I know Bailey is helping little Donovan get through this...As all his angels are doing...Thank goodness for angels to help our little ones through the worst. Big hugs to you all
melissa Rasmussem (all-kids) www.caringbridge.org/in/babydonovan <meldardyl2000@yahoo.com>
- Sunday, February 5, 2006 7:50 AM CST
Hi Christine-
Just wanted to let you know that I am thinking of you today. I hope your New Year has started off well and that things will continue to get easier on all of you! Praying for you daily! Love,
Dana and Braden Jobst
www.caringbridge.org/visit/ashtinandbraden
DANA JOBST <Dajobst@cox.net>
HAMPTON, VA - Saturday, January 7, 2006 10:45 PM CST
Dear Christine and Family:
This is the first I have heard about the passing of Bailey. I am just at a loss for words. I know that God has gathered another angel. I am so happy that you were all able to be there for him. Christine...you are a person of such strength! You have faced so much...and yet you always come out stronger in the end!
You are all in my thoughts and prayers...
Love,
Sloan
Sloan Kozsan <PSKozsan@aol.com>
Sacramento, CA USA - Wednesday, January 4, 2006 10:59 AM CST
Thinking of you guys as we go into the new year. I'm so thankful that I got to meet Bailey this year and your family too. I still think of you often and send prayers your way. Hope this new year is a bit easier on you all!
Sonja <sonjahickman@yahoo.com>
Durham, NC - Saturday, December 31, 2005 11:02 AM CST
Dear Christine,
Thank you for thinking of us on Christmas day. You are so sweet. Your kind words always bless me. You too are in our hearts, our thoughts and our prayers. On Christmas Eve I thought of you so many times and all I knew to do was to pray. I will continue to pray for you and your precious family. You are so strong Christine and I am so proud of you. God loves you so much. I know that He will continue to give you strength. I am so thankful that our paths crossed.... However, I do wish they would have crossed under different circumstances........But, never the less, I am glad I know you. Thank you for the updates in your journal. I love to read your entries...you write beautifully.
Much Love,
Stacey (Kaylee's Mom)
Stacey Krause www.caringbridge.org/visit/kayleekrause <Kayleespromise@msn.com>
Durham, NC - Wednesday, December 28, 2005 0:10 AM CST
You and Bailey are in my thoughts. What more can I say.
Love, Jane Infinger
Jane Infinger
- Saturday, December 24, 2005 4:16 PM CST
Hey Christine-
I just wanted to let you know that you and your family are still in my thoughts and prayers. When I was reading your entry I immediately thought "I am sending her a bracelet right now!" I was so happy to continue reading and see that you are now able to proudly wear Baileys bracelet! Your are such a strong woman and I am inspired everytime I read your entries! I am so blessed to have met you- I know we did not have many conversations but as a transplant family you just have that connection. Thank you for continuing your journal entries. I will keep in touch and hope you have many brighter days ahead of you!!
Love to all of you,
Dana and Braden Jobst (former 5203)
www.caringbridge.org/visit/ashtinandbraden
Dana Jobst <Dajobst@cox.net>
Hampton, VA - Wednesday, December 21, 2005 11:43 AM CST
Your journal entry of Dec 11th is beautiful and shows the strength and beauty that you have used to sustain you through this difficult time. My heart goes out to you all. I see some of your pain everytime I look in my son Jason's, eyes. He talks of Bailey often. Our love to you.
Karen (and Larry) Grey <twingreyfox@hotmail.com>
Fryeburg, ME USA - Friday, December 16, 2005 12:50 AM CST
Christine
I thought of you guys this weekend as I watched Harry Potter. I know I'll never see the book or movie again without remembering Bailey as he so bravely wore his little outfit in the parade on 5200.
I admire your strength and determination. Now we know where your precious boy got it from. I know the kids on 5200 will be so excited to get the bears---
We're continuing to pray for your family daily.
Carrie Stroud (Camden's mom)
http://www.caringbridge.org/visit/camdenstroud
Carrie Stroud
Durham, NC United States - Monday, December 12, 2005 8:05 PM CST
Todd, Chris, Brandon and Britta, As the holidays fast approach remember you are still in all our thoughts and prayers. It was so good to see pretty girl (Britta) back at daycare!!!(CU)
Shannon Kurze <snrkurze@msn.com>
Silver Lake, NH USA - Sunday, December 11, 2005 7:42 PM CST
Dear Christine and family,
Bailey has been in our prayers since we have been on the unit. We recently found out by being back at the unit that he has left to be in peace. We are praying for God's grace and peace to comfort you right now and hold you and your family up during this very difficult time. We will always remember him and his Harry Potter glasses from the Halloween parade up here. You all are close to our hearts right now and we pray God will strengthen you through our prayers. This verse has comforted us during our journey with Mason, we hope it will provide some comfort for you. "The God of all grace, who called you to his eternal glory in Christ, after you hae suffered a little while, will himself restore you and make you strong, firm and steadfast. To Him be the power for ever and ever. Amen" 1 Peter 5: 10-11
In His Love and Care
Eddie, Becky, Jazzy & Mason Jenkins (was 5207)
www.meetmason.com
Becky Jenkins <bajenkins1@gmail.com>
Boise, Id USA - Monday, December 5, 2005 1:40 PM CST
Hello, I do not know your family, but I understand what its like to lose someone close to you. My prayers will be with you in this sad time. I found you website filled with hope and love for Bailey. He's a beautiful little boy. God be with you in this difficult time. My adoptive mother died 7 years ago and I can tell you it's still sad but it's sometimes nice to know people out there care. God Bless You and Your Family! I am so sorry for you loss, if you need anything, someone to talk too who understands please feel free to e-mail me.
Vanessa <vanessa.loyer@gmail.com>
Calgary, Canada - Friday, December 2, 2005 0:14 AM CST
Hello, Long ttme friend. Tracy told me the news the other night about your son. I'am very sorry and very surprised to what happened. Tracy and I both wish that we could have attended the services. Please take care and send an e-mail when you can would like to keep in touch. Have a good Christmas and a good New Year. Love always Debbie K.
Debbie
- Thursday, December 1, 2005 10:35 AM CST
Chris, Todd & Family
The service for Bailey was lovely, it had so much meaning for everyone..Thank you for sharing Bailey with all of us.. Bailey was very lucky to have such a lovinging and dear family..
He will be greatly missed by all.
Take Care,
Denise/SACO RIVER PEDS
Denise Wales <dwales@pivot.net>
Denmark, Me - Wednesday, November 30, 2005 9:44 AM CST
Still thinking of you and praying for you here in NC. Thought you might want to know that you are still very much in our thoughts here. Tonight a few of us who knew you guys were recalling what a sweet family you were and how glad we were that Bailey was able to be here on 5200 surrounded with love and beautiful music when he left us. Keep holding on to each other. That's what will get you through these rough days.
Sonja <sonjahickman@yahoo.com>
Durham, NC - Tuesday, November 29, 2005 2:57 AM CST
Christine
I have held you & your family close in my heart and prayers over the past week. I admire your strength & faith! I am so glad that our family had the opportunity to get to know you & Bailey. May God continue to comfort you.
Carrie Stroud (Camden's mom) Duke 5200
Carrie Stroud
Durham, NC United States - Friday, November 25, 2005 10:55 PM CST
Dear Christine,
I just wanted you to know that we are praying for you and your family. I am so glad I had the opportunity to meet you and Bailey (In the waiting room at the Eye doctor and here at Duke on 5200). I would have love to have gotten to know you better here on the BMT Unit. I so admire you and your strength. You are an awesome mother and the love you have toward Bailey is so evident. I know you were a great support and comfort to him. My heart aches over Bailey, but I know he is at peace and in no more pain. May God Bless you and watch over you today and Always. I pray for great peace for you and your family for the days ahead. If I can help you in any way, please let me know.
Stacey Krause (Kaylee's mom - BMT Unit - Room 5209) <kayleespromise@msn.com>
Durham, NC USA - Friday, November 25, 2005 9:02 AM CST
I just want you all to know you are our thoughts and prayers!Just remember to keep all the loving memories alive as you go through this hard time! With our prayers, Angel Mika Summers' family
Mary Sanders <marysanders27@yahoo.com>
- Thursday, November 24, 2005 7:10 PM CST
Todd, Chris, Brandon, Britta, you are all in my thoughts and prayers. What a long, arduous journey for such a young boy to have to endure! Reading your entries only reinforce just how strong and remarkable of a boy he truly was! Bailey will continue to inspire us, and he will continue on in all of our memories of him! Take time and enjoy your family, and in the meantime I will miss Miss Britta-B at daycare(C.U.)!!!!
Tanya LeBlond <tleblond@hotmail.com>
Otisfield, ME USA - Wednesday, November 23, 2005 3:32 PM CST
I am so sorry for your loss. Sending you prayers, love, and hugs from across the ocean.
Netty, Tom and Angel Linda Jane Claverie (Krabbe Family) <nclaverie@planet.nl>
Tilburg, The Netherlands - Tuesday, November 22, 2005 6:33 PM CST
I just wanted to tell you how very sorry I am for the loss of your son. My daughter Eden died 3 years ago of Krabbe Leukodystrophy at almost a year old. Kelly Brown let the Krabbe family know about the loss of you boy, thanks Kelly.
We actually don't live all that far from you, we are in Maine...
I'd like to tell you time will heal your heart, but it won't, it will always ache, but as the days go by, it does get slightly easier to come to terms with everything that's happened... I wish you all the best and I'm praying for your family...
God Bless
Tiffany, Ron and Angel Eden Skyy Benson <shuggyshacky@yahoo.com>
Biddeford, ME - Tuesday, November 22, 2005 5:51 PM CST
I am so sorry for your loss. It was good to talk with you Christine, please remember what I said - call me anytime. Bailey was a great boy with a great personality. I am blessed to have meet him.
Kelly
Kelly Brown <kelly@huntershope.org>
Durham, NC - Tuesday, November 22, 2005 3:37 PM CST
A beautiful day to say a beautiful goodby to a beautiful little boy. How we will all miss Bailey so much. A true fighter who will never know the impact he has made on this community. Its always amazing how the most tragic of events can bring old friends back together. Chris, I have truely missed you and our friendship. Im here for you day or night. Ill be in touch soon. Much love Charlotte
charlotte smith <char_smith@netzero.net>
center conway , nh usa - Monday, November 21, 2005 7:05 PM CST
Today was Baileys funeral. The turn out was incrediable. I miss my little buddy. Saying good bye is too hard...If this web site gets read by the staff at Duke...THANK YOU for all you did to make a very special someone comfortable till the end...GOOD BYE BAILEY, I LOVE YOU AND WILL MISS YOU SO VERY MUCH.
Jason Grey <jgrey220@yahoo.com>
Fryeburg, ME USA - Monday, November 21, 2005 5:05 PM CST
Thinking of you and sending prayers on this very hard day. I hope lots of sweet memories of a great little boy are shared today. My favorite memory is how excited he was when he got his wand and knew that his Harry Potter costume was on the way. In the midst of everything he was still a little boy excited about Halloween.
Sonja <sonjahickman@yahoo.com>
Durham, NC - Monday, November 21, 2005 11:50 AM CST
there is a new, bright star shining from heaven tonight. i always did believe that children who pass become stars in the night sky shining their love light down on us all.
bailey, todd, chris, brenna, and brandon have given me more strenghth than i ever imagined one person could use. bailey, you've touched me in ways i never thought possible. i remember the christmas eve we met in dover(?) you were so excited santa was coming. you are a sweet, precious star in my life.
chris and todd, nothing could be more unfair. but your faith and love gives us all a life lesson. be safe knowing how many lives bailey has touched, how we came to love him and you. and how much he taught us in his short life. (which has taken on another realm that is by far not over) and no one can hold a candle to your strength; may we all learn from it.
you're in my prayers as bailey twinkles in my night sky.
with love, ruth walton ( courtney's mom)
ruth walton <ruthjwalton11@comcast.net>
woburn, mass usa - Sunday, November 20, 2005 5:11 PM CST
Blessings to all of the Robinson Family, your tale comes to me through the huge EMS family that certainly wraps its cumulitive arms around you at this time.
Jennifer Frenette <usd2bfn@yahoo.com>
Lancaster, NH 03584 - Sunday, November 20, 2005 10:54 AM CST
Chris, Todd, Brandon and Britta: As everyone knows, Bailay was a very special person. He was so strong and brave throughout his whole ordeal.I'm feel very honored to have been able to help bring Bailey back home to Conway. He was such a valliant little trooper.God bless you all and Baileys extended family and friends...Keith
Keith B. Noble <deputyknoble@cvillagefd.com>
Conway, NH - Sunday, November 20, 2005 7:47 AM CST
I came to know of Bailey through a mutual friend, Stacy. I have been offline for a couple of weeks due to tech problems and when I logged in today and saw Stacys message, I came immediately. I'm deeply saddened that I never had the opportunity to meet your sweet Bailey. Reading through this guestbook, I was touched by the incredible amount of love and support from people across the land. Let this love and support , along with precious memories surround your heart and Let Bailey's love carry you through this difficult time. We will keep you in our thoughts and prayers, always. Angie, Joshua, Cheyenne and Tony
Angie Bunch <lost_angel5@yahoo.com>
Williamsburg, KY US - Saturday, November 19, 2005 10:04 AM CST
We were so saddened to learn of Bailey's passing. Only knowing Bailey for a short time, we could see what a fighter he was and how much of a love for life he had. We will always think of him whenever we see Harry Potter. His Halloween costume was perfect and brings a smile to our faces when we see then pictures and remember that day. God bless.
Tom, Paula and Brendan Lackey <leesburglackeys@aol.com>
Leesburg, VA USA - Saturday, November 19, 2005 9:06 AM CST
I am a friend of Susan Fleming (Micah's mom). I am so sorry to hear of your loss. Bailey was such a handsome little boy. I can't imagine your grief, but you are in my prayers. May God give you peace, comfort, and be your strenght during this time and the days and months ahead. Only He knows exactly what you've gone through and He can carry you through. Isaiah 41:10
Prayers
Brigett Holmes <Brig4JesusChrist@yahoo.com>
Anniston, AL USA - Friday, November 18, 2005 11:13 PM CST
Chris, Todd, Brandon, Britta
You've so been on my mind. Please feel the hugs and kisses I'm sending. I went by to check on your house after work yesterday (and Todd I was alone in the walkin and REALLY missed you) Erins boyfriend and mine were there stacking the wood so it won't be in your way when you arrive. Chris it was snowing!!!! Not enough to accumulate but enough to look pretty falling in the lights and with a full moon. I wished you were there to share it (although I suspect we'll get plenty more) I love you. Have a safe journey home.Take care of each other.
Kisses
jeanne
jeanne slattery <tlb_momx4@adelphia.net>
tamworth, nh usa - Friday, November 18, 2005 8:16 AM CST
Just wanted to let you know that I'm thinking of you and praying for you as I work tonight. It's still hard to believe that I started out this little stretch of working with my buddy Bailey and now as my week of work comes to an end he isn't here anymore. I only got to know Bailey for a short time but his courage, intelligence and sweetness left a permanent impression on my heart. You are such a great family. Hold on to each other through this and I will keep the prayers coming your way.
Sonja <sonjahickman@yahoo.com>
Durham, NC - Friday, November 18, 2005 2:36 AM CST
Chris and Todd,
My heart aches for you right now. I just heard about Bailey last night. I am so glad he was able to go in such a wonderful way. We will miss Bailey so much. We didn't know you for long, but the impact was made. Bailey loved Micah so much, he reminded him of his baby sister. We will keep you in our prayers. Your suffering will continue, but thankfully, Bailey's has ended. What beautiful memories we will always have of him.
Love,
Susan Fleming (baby Micah's mom)
www.caringbridge.org/al/micah
Susan Fleming <travisandsusan@excel.com>
Durham, NC USA - Thursday, November 17, 2005 10:58 PM CST
Chris and Todd-
I don't know if you remember me but I'm Gage's mom Heather. We would see you and Bailey out in the hall walking on 5200. Gage was the 2 year old always on the tractor. We heard about Bailey's passing a few days ago and my heart just breaks for you. I just found his website and read the details. You probably already know but Gage developed VOD too. I can relate to your uncertainly and how worried you must have been while trying to figure out what was wrong with Bailey. We were hoping that since the statistics for developing VOD are not real high that Gage satisfied that number for a while so no one else would have to experience it so soon. We were so fortunate to be able to receive the Defibertide in time (it was close). Please take comfort in the fact that even people that you don't know are praying for your family and are thinking of you.
Sincerely, Heather Thompson
Heather, Eric and Gage Thompson <htast@aol.com>
Wilmington, NC USA - Thursday, November 17, 2005 8:57 PM CST
Chris and Todd,
Im so sorry for your loss. Bailey was a true joy to all who knew him. Im sorry I didnt spend more time with him. Bailey is now at peace and shining a big toothy grin down at all of us.
Peace be with you all.
Love from, Charlotte and Baileys dog friend Casey.
charlotte smith <char_smith@netzero.net>
center conway, nh usa - Thursday, November 17, 2005 7:12 PM CST
Dear Bailey's Family, I will be praying for you as you go through the hardest time I can imagine in life. I am Micah Fleming's Grandmother and Susan told me about Bailey this afternoon. I understand your relief in that he will not have to suffer the effects of this horrible disease. However I know the pain in your loss is great and I can not even imagine losing a child. My husband (Susan's Dad) died of the adult form this past July. I know that God can comfort because He has comforted our family. May God Bless and comfort you. My deepest sympathy, Linda Tamblyn
Linda Tamblyn <tmtlht1973@yahoo.com>
Swainsboro, Ga USA - Thursday, November 17, 2005 6:15 PM CST
Dear Chris and Todd,
We are so sorry to hear of Bailey's passing. We all know that Bailey is that little angel that will be with you, helping to mend your hearts.
Gloriane and Rob Pettis <rpettis@adelphia.net>
Center Conway, NH USA - Thursday, November 17, 2005 3:04 PM CST
Dear Robinson family,
Although we have never met you personnally, my children Ashleigh now 8th grade at KMS and Daniel, 3rd grade at PTS both new Bailey. We are sadden to here of your loss and our hearts and deepest sympathies go out to all of you. Chris your recent website update brings both tears to my eyes and gratefulness that you were able to hold and love your son til the end. As a mother, I pray everyday for the health of my children and hope I never have to endore the challenges your family has so valently fought. Our prayers and wishes go out to all of you.
Laura Nash and family <lwnash@ncia.net>
Eaton, NH USA - Thursday, November 17, 2005 2:09 PM CST
Our thoughts and prayers go out to you. Bailey you will be sorely missed by your Scouting family. For you to 'do your best' was not just the Cub Scout motto... you lived it every day. God Bless. Your friends in Pack 150.
Andrew Chalmers <andy@ladrew.com>
Conway, NH - Thursday, November 17, 2005 7:59 AM CST
I'll miss Bailey coming down the hall at school and saying hello Alan the way he did.
Alan - Pine Tree Custodian
Alan Ottolini <aoao@adelphia.net>
Madison, NH USA - Wednesday, November 16, 2005 8:58 PM CST
Bailey was a great kid!! even though ive only got to see him a few times....he opened my heart because he is just that person that will...he has touched everyones hearts.I will forever keep him and his family in my prayers
Lisa Pettis
Center Conway, NH US - Wednesday, November 16, 2005 8:21 PM CST
Dear Todd and Chris,
Steve, Kimberly and I are extremely saddened by your loss. I wish I had known Bailey. Kimberly was a sixth grader at Pine Tree when Bailey was in Kindergarten. She remembers him from Friday morning exercise that she did with the class.
As I was in your position four years ago, I have learned that there is nothing you can say to a grieving parent to make it better. I wish I had many words of wisdom, but I don’t. Just know that the whole community is here for you. You are cared about by so many people. Steve, Kimberly and I are here for you too.
Yesterday after we had learned that Bailey had flown off to touch God’s face, I asked my son, Patrick, to please help Bailey out in heaven and show him around. I have no doubt that he did because around midnight last night I awoke to something dinging. Two cell phones and one radio started dinging at various times. I was running around the house trying to locate the dings. The dings remind me of the sound of an infusion pump. I have no question in my mind that was Patrick or Bailey or both telling me that all is well. The way I was running around the house, I have no question that little boys are still mischievous in heaven.
Todd, it was so nice to meet you at the Flatbread’s fundraiser. I hope I get to meet Chris soon.
Bailey..... fly, fly precious one, your endless journey has begun. Godspeed little man. Safe journey home to all. Love, Steve, Lisa, Kimberly and Elizabeth Cote
Lisa Cote <spcote@adelphia.net>
Conway, NH - Wednesday, November 16, 2005 7:55 PM CST
Dear Todd and his family, my heart is with you all, i wish Bailey peace now and you all comfort in knowing he's with the angels above.I wish you all a safe trip home and Todd you were great all through class and i'm here if you need me. Talk to you soon.
Cindy Basnar <earnhart8racing@yahoo.com>
Center Conway, NH USA - Wednesday, November 16, 2005 5:29 PM CST
My heart goes out to all of you at this time. So sorry for your loss. My thoughts and prayers are with you.
Jan Ruppel <jruppel@vincennes.net>
Vincennes, IN USA - Wednesday, November 16, 2005 5:13 PM CST
Our thoughts and prayers go out to Bailey's Family.
John Eastman <john@conwayrec.com>
Albany, NH - Wednesday, November 16, 2005 4:12 PM CST
I will keep you all my prays. I am so sorry for your loss I now that you are all going through a tuff time right now but if you need any thing just call. Me and My mom have some people going up on saturday to stack all the wood because it is in the drive way.
Erin Slattery <Silvermonkey614@yahoo.com>
Tamworth, NH USA - Wednesday, November 16, 2005 2:51 PM CST
I heard about Bailey through Stacy - I am so sorry to hear of your loss. Bailey will surely be in heaven having fun with the angels. My thoughts are with you and your family.
Even though I didnt know you all, your story has touched me deeply.
Deb Payne <mizdooleys@yahoo.co.uk>
Newcastle upon Tyne, UK - Wednesday, November 16, 2005 1:46 PM CST
Dear Robinson Family, You are all in my thoughts and prayers and always remember that Bailey is with you, in your heart, mind and soul. God Bless. Love Jamie
Jamie Arsenault <dolphin2002@hotmail.com>
Gorham, NH - Wednesday, November 16, 2005 10:48 AM CST
Dear Chris and Todd, Your family is is my thoughts and prayers. I will always remember Bailey's smile and how much fun we had in kindergarten. Love, Mrs. I
Jane Infinger
Chatham, NH USA - Wednesday, November 16, 2005 9:21 AM CST
Dear Bailey, I am going to miss our walks, your growls, and your beautiful smile. I am also going to miss our wonderful snacks together, the 'Bailey and Amy' snacks.
I will see you again someday. Brandon, I am so proud of you, you are a wondeful big brother to both Bailey and Britta. You stepped up to the plate for you family and I am so thankful to know you and proud of you. Britta: Remember, A cat does not say baaaa. I will also be able to remember Bailey's face, whenever I see you I will also see Bailey. The same eyes, and smile. Todd and Chris: Nothing can make things any easier. There are no words or Pearls of Wisdom. You just need to feel. Feel the pain, hurt, anger, love, and dreams. Know that your friends here at SRMG will stand by you. Also know that when we offer to help, that you let us. This will help you but also help us to heal as well. May God Bless you all and keep you safe during your trip home to NH...Love, Amy
Amy Patch <patchcrew@yahoo.com>
Glen, NH 03838 - Wednesday, November 16, 2005 8:56 AM CST
Just heard from my friend, Barbara Forslind, that Bailey has earned his Angel Wings. Your family will remain in our thoughts through the hard days to come.
Ken. (Anmgel Evie's Granddad in England.)
Ken Roberts <patnken22@btinternet.com>
Leeds, England - Wednesday, November 16, 2005 7:56 AM CST
My prayers and thought to your Mom and Dad, Brandon and Britta, and all those who loved you and will miss you as you fly.
FLY BAILEY, FLY. My grandson, Angel Mitchy, loves fire engines and I am sure he will show you the ropes.
God bless,
Barbara
Barbara Forslind, Nana to Jason, Kyle and Angel Mitchy. www.caringbridge.org/nh/forslindboys <baforslind@net1plus.com>
Pepperell, Massachusetts, 01463 - Wednesday, November 16, 2005 6:44 AM CST
Bailey I just wanted to tell you that I will miss you. Mom has a picture of us together that she's going to put in a frame so that you'll always be around me. Bye Bailey, I'll miss you a lot. Love your friend, Logan Lyman
Stacy Roy <scroy2004@adelphia.net>
Center Conway, NH USA - Wednesday, November 16, 2005 6:39 AM CST
Dear Robinson Family- You may not know me but from what ive heard about Bailey, He sounded like a wonderful little fun loving boy, My deepest sympethy goes to you and your family, Just remember Bailey will always be with you!
Danielle, Shawn, Mackenzie and Tj Peterson <fox_racing_girl_32@peoplepc.com>
St Clair, Mi USA - Tuesday, November 15, 2005 10:50 PM CST
Dear Robinson Family- We never had a chance to officially meet but I just wanted to let you know that my thoughts and prayers are with you. I know that Bailey was a special child and that he must be enjoying heaven right now and looking over all of you. I am so saddened by your loss. I will be praying for you through this difficult time.
Dana Jobst (Braden's mom in 5203)
www.caringbridge.org/visit/ashtinandbraden
Dana Jobst <Dajobst@cox.net>
Durham, NC - Tuesday, November 15, 2005 10:36 PM CST
Todd, Chris and the entire Robinson family I am truely and deeply saddend by your loss. I don't think that anyone that knew Bailey could say that they weren't touched by him or the amount of love that you family has for one another. There are two things that I will remember the most about Bailey, his smile and his skill with a squirt gun (Logan's Birthday party). I will leave an entry tomorrow from Logan, once he has had time to grasp all of this. Until then, Today Heaven gained an Angel to look over us all. You are in our thoughts......Stacy, Ryan, and Logan
Stacy Roy <scroy2004@adelphia.net>
Center Conway, NH USA - Tuesday, November 15, 2005 9:57 PM CST
Todd, Chris, Brandon and Britta,
You are all in our prayers. Bailey was so lucky to have such a loving family. And we are all so lucky to have know him. Its amazing how some people can leave such big footprints in such a short time and others can be here for a long time and leave so little. We love you. Please know we are here if there is anything you need or if there is any thing that we can do.
Kisses,
jeanne
jeanne slattery <tlb_momx4@adelphia.net>
tamworth, nh usa - Tuesday, November 15, 2005 9:01 PM CST
Dear Bailey, I miss you very much. I hope you like my green bear I gave you. I also hope you like my cards too. I really , really miss you bailey, because eveytime i hold my red bear i think of you. I hope you are having a good time up in heaven. I hope you meet lots of friends and get to play alot and be able to do whatever you want and i hope that you never forget me cause i wont forget you. Love Gianna Cialdea. Ilove you Bailey.
Jacqueline Cialdea <squeaker29@yahoo.com>
Center Conway, NH - Tuesday, November 15, 2005 8:44 PM CST
You are an amazing and gifted family. Bailey is so fortunate to have such loving and caring parents, grandparents, and friends. So many people have been touched by the warmth and sharing. James and Gail Kennedy send their love and healing thoughts.
Gail and James Kennedy <jas-gail@comcast.net>
Exeter, NH USA - Tuesday, November 15, 2005 8:16 PM CST
Dear Robinson Family....I can't stop thinking about all of you..the strength, the love and all the positive energy you must be receiving. You are all in my thoughts and in my prayers that God will give guide you during this difficult time. Bailey is at peace,no more pain and suffering.He can run and play and eat anything he wants too.I will always remember his smile..God bless all of you. Love, Mrs. Smith
Diane Smith <Didi639@yahoo.com>
Ctr. Conway, NH USA - Tuesday, November 15, 2005 8:13 PM CST
Bailey and family, as I write I dont know what to say but that God has witnessed Bailey as agreat miracle and your family for being with him...How wonderful that you were able to participate in his routines...
melissa mom to baby donovan <meldardyl2000@yahoo.com>
durham, nc - Tuesday, November 15, 2005 4:33 PM CST
Hey there,
I'm checking in on how things r going.
I pray for you Bailey and for your family.
Brooke is sick now to, she has her ups and downs.
Her blood counts r down right now and is way more tired than eva but you kids just keep on going.
All that KID kinda energy that puts a smile on everyones faces.
~~Always thinking of your guys~~
Love & Prayers
Denise,Jason,Kristen,Jessica,Anthony,Princess Brooke,joey
xo Princess Brooke's Page xo
~~The Ferrara Family ((((((((((((((((( HUGS )))))))))))))))))))))))))) <denise69ferrara@hotmail.com>
Tamworth, nh - Tuesday, November 15, 2005 3:50 PM CST
Todd, Chris, Brandon, Bailey & Britta,
You are such a strong family and I just can't imagine everything you have endured. My heart and prayers go out to you all each and every day. God Bless and please let me know if there is anything I can do. Tell Bailey I miss him and hope to see you all back in Conway, NH very soon.
Jeanne Graves <jbgraves@localnet.com>
Center Conway, NH USA - Tuesday, November 15, 2005 12:17 AM CST
Tell everyone to keep fighting and let them no that they are in my prays. I am hopping that you all got really good news, and I will keep praying for good news everyday.
Erin Slattery <Silvermonkey614@yahoo.com>
Tamworth, NH USA - Tuesday, November 15, 2005 8:06 AM CST
Thank God,
It was so good to read Chris' entry this morning. Am so grateful Brandon and Britta made it ok. (I like Brandons hair too!) I am sooo glad Chris was able to get some hands on time with Bailey ( I know he felt the love in them) I was up off and on all night and each time I said a special prayer and sent LOTS of POSITIVE ENERGY to Baileys host cells!! I just know they will win the fight. Please know all of us at Saco River send our love, Erin and Jonathan do too.
Kisses,
jeanne
jeanne slattery <tlb_momx4@adelphia.net>
tamworth, nh usa - Tuesday, November 15, 2005 6:00 AM CST
Bailey, Chris, Todd and Brandon - Everyone here at Pine Tree has you all in our thoughts and prayers. We hope that you can feel the positive energy coming from Mill Street! You are our heroes. We love you - Mrs. J. and the staff at school.
Laura Jawitz
Madsion, NH USA - Tuesday, November 15, 2005 5:56 AM CST
Dear Bailey,
The Forslind Boys "Nana Barb" sent me your
web site. Sending you lots of prayers.
Carol/Volunteer Hunter's Hope/Angel Sarah's Gram <Blsfn12@aol.com>
Le ROY, NY - Monday, November 14, 2005 9:00 PM CST
Robinsons
Praying for you all. May the good lord hold you in his loving arms.
We love you all so much. Hope you can feel all the POSITIVE THOUGHTS we have for you.
jeanne
jeanne slattery <tlb_momx4@adelphia.net>
tamworth, nh usa - Monday, November 14, 2005 8:34 PM CST
We were once at Duke for a transplant. A mutual friend sent me Bailey's website. We are keeping all of you in our thoughts and prayers. Duke is an awesome place to be and great doctors. We will keep hoping for more good news.
Anne Rugari <arugari@cinci.rr.com>
Cincinnati, OH - Monday, November 14, 2005 7:15 PM CST
Hi Bailey,Chris ,Todd,Brandon and Britta
Hope you all made to Bailey's safely. Bailey we are thinking of you and sending POSITIVE ENERGY your way.. We were thinking of you as we walked the Saco river bank today with unusually warm temps in the 60's. We skipped stones for you and your Mom and even picked up a "zebra" rock for you. Your rock is waiting in North Conway a few more days then it will start a journey south to you so that you can have a piece of the mountains with you. Chin up keep up and know that you and your family are loved by many in the Mount Washington Valley.
Love Pam,Mark, Drew, and Eric
P.S. Hi Chris we miss you SO MUCH at the Partners in Health Meetings. BIG HUGS to you.
Pam Bormann <pjennebormann@yahoo.com>
North Conway, NH USA - Monday, November 14, 2005 6:38 PM CST
Todd, Chris, Bailey, Brandon and Britta,
You are all in my thoughts and prayers. Stay strong.
Shiloh Tibbetts <shiloht@pivot.net>
Lovell, Me USA - Monday, November 14, 2005 5:59 PM CST
Todd, Chris, Brandon, Bailey, and Britta - You are in my thoughts and prayers. Your Pine Tree family is certainly praying for a speedy recovery. Stay strong. Love, Carol Sargent
Carol Sargent <csarge51@adelphia.net>
Center Conway, NH USA - Monday, November 14, 2005 4:08 PM CST
Bailey you are a fighter and I now that you will make it through this. You are in my every thought and prayer. Stay strong! And hope to hear that you are up and running around like a kid your age should be doing, soon.
Lea Guptill <skigurl142002@yahoo.com>
Fryeburg, ME USA - Monday, November 14, 2005 2:06 PM CST
Todd, Chris, Bailey and Family
You are in the thoughts and prayers of all of us at Pine Tree. Stay strong.
Bette Tibbetts <tibbet@localnet.com>
Center Conway, NH 03813 - Monday, November 14, 2005 1:42 PM CST
Hey Robinson's!!!
Hope & Prayers EVERY minute of EVERY day for all of you!!!
Rita & Herb Richardson <rfamily@together.net>
Lancaster, NH USA - Monday, November 14, 2005 11:05 AM CST
Robinson Family........Our thoughts and prayers are with you all. Bailey, stay strong little man! Logan misses his buddy terribly. Fight the good fight and we will do all that we can from here. Best wishes Stacy, Ryan, and Logan
Stacy Roy <scroy2004@adelphia.net>
Center Conway, NH USA - Monday, November 14, 2005 8:24 AM CST
Hang in there Bailey, I know you can do it. Life is a precious gift that sometimes we have to fight for. I know because 17 years ago, my life was meausured in hours in an ICU at Mary Hitchcok Hospital. I just had an emergeny double by-pass. I'm still going like the " Energizer Bunny." Love and Luck, James
James Kennedy <jas-gail@comcast.net>
Exeter, NH USA - Monday, November 14, 2005 6:36 AM CST
Lots of positive thoughts and prayers headed your way.
God bless,
Barbara
Barbara Forslind, Jason, Kyle and Angel Mitchy's Nana www.caringbridge.org/nh/forslindboys <baforslind@net1plus.com>
Pepperell, Ma. 01463 - Sunday, November 13, 2005 5:04 PM CST
Thinking of you all. Theresann D'Angelo Kittery, Me. Friend of Grammies!
Theresann D'Angelo <EPDangelo@aol.com>
Kittery Point,Me. 03905, Me USA - Sunday, November 13, 2005 2:58 PM CST
Hope Todd had an uneventful flight to N.C. Am praying and crossing all my fingers and toes that Bailey's health makes a big turnaround today and that he fights with all his might!
Wendy Quimby <parameeyore@comcast.net>
Conway / Salem, NH 03818 - Sunday, November 13, 2005 9:25 AM CST
Hi Robinsons,
I will be thinking of all of you today and hoping that Todd gets down there soon. I am also sending all my positive thoughts to Bailey. If you need some extra money to get there please let me know! You have become an amazingly strong family. Your friend, Nelle
Nelle Killourie
Jackson, NH USA - Sunday, November 13, 2005 7:26 AM CST
Todd, Chris and Bailey,
Hope you can see and feel the healing warmth of sunshine this morning. We see the birds playing under the feeder asking for more seeds please. You all are in our thoughts and prayers, Kitty and Warren
Kitty and Warren Clark <kclark47@comcast.net>
Kensington, NH USA - Sunday, November 13, 2005 6:19 AM CST
Bailey,
You, my little friend, are so very loved! The light of your smile touches our hearts all the way here in Texas! We love you, we are with you right now little buddy. Kisses and hugs..and giggles and tickles.
Melany & Brian Summers <bpsummers@gmail.com>
Plano, TX - Saturday, November 12, 2005 10:09 PM CST
Hi Chris and Bailey,
We sure do miss you at school. I hope that you will be back with us soon. If Bailey would like to send any messages to his classmates you can send them to me and I will print them out and give them to Miss B. for you.
Love,
Bette Tibbetts
Bette Tibbetts <tibbet@localnet.com>
Center Conway, NH USA - Wednesday, November 9, 2005 3:48 PM CST
Hey Bailey - Hope you enjoyed that pepperoni pizza! The staff at Pine tree certainly enjoyed our mixed batch. Our thoughts and prayers are with you. Stay strong!
Robin Henne <r_henne@sau9.org>
Shelburne, NH USA - Monday, November 7, 2005 12:31 AM CST
Hello Chris & bailey, Pam Borman has been keeping me updated on your progress. garrick and eric are in the same class at waldorf. Tavon, our new baby is sitting in my lap, therefore no capitals, He was born sep 27 and is adorable with a full head of hair. carston was a vampire pirate on Halloween. Did you dress up. Carston misses you at school. our prayers are with you both. love sonya and family.
Sonya Porter <sm2porter@yahoo.com>
Ctr. Conway, NH USA - Friday, November 4, 2005 4:22 PM CST
Hi Bailey, postcards are on the way. Enjoy, Gail and James hold you in their hearts.
James & Gail Kennedy <jas-gail@comcast.net>
Exeter, NH USA - Friday, November 4, 2005 3:39 PM CST
Bailey, I am praying for you and your family will all my might. Brandon once again if you need anything feel free to call me anytime you know where to find my phone number or you can email me. Todd and Chris I would be more that glad to help out in any way possible, i.e. babysitting Britta. Call me anytime you need my help!
Lea Guptill <skigurl142002@yahoo.com>
Fryeburg, Maine - Thursday, November 3, 2005 8:08 PM CST
Tomorrow is transplant Day. And we will all do the "GROW CELLS GROW DANCE!
Godspeed,
Barbara
Barbara Forslind, Jason, Kyle and Angel Mitchy's Nana www.caringbridge.org/nh/forslindboys <baforslind@net1plus.com>
Pepperell, Ma. 01463 - Wednesday, November 2, 2005 3:24 PM CST
Hi Bailey and Chris,
Wanted you to know that I'm rooting for you. I just checked out your website, which I learned about through the ad for tonite's fundraiser at Flatbreads. Couldn't make it there tonite, but grabbed a coupla to-go pizzas which I and my family enjoyed (we, too, had pepperoni!) Things were really hopping there this afternoon, so if that's any indicator, tonite's fundraiser must have been a huge success. Blessings to you and your family.
Benita Silver
Conway, NH USA - Tuesday, November 1, 2005 10:54 PM CST
Hi Bailey and family, You are in my thoughts and prayers. I know the chemo is hard, but it's doing it's job. You're a strong boy and I know you'll bounce right back. I'm excited that you are having your transplant on Thursday. I'm having one sometime this month in Boston. Take care. Love, Mrs. I.
Mrs. I
Chatham, NH - Tuesday, November 1, 2005 6:24 PM CST
Hello Chris and Bailey! It is Kristen & Bill. We just saw the benefit in the paper at Flatbread for tonight and I thought that I would e-mail you and let you know I was thinking of you. I will send warm thoughts and prayers out to you all. Missed seeing you for Halloween this year, but I bet you dressed up anyway Bailey. Thinking of you and we will enjoy some pizza tonight. See You.
Kristen & Bill Barbin <Kristen@homesaregood.com>
Center Conway, NH - Tuesday, November 1, 2005 9:26 AM CST
Happy Halloween, Harry, oh, I mean BAILEY!!!!!!!!! Have a fun day today. We love and miss you!
Courtney and Chad
Courtney Robinson <courtrobin@comcast.net>
Frisco, CO - Monday, October 31, 2005 8:15 AM CST
Hi, I am Ashleigh's mom (Krabbe Transplant), I am the one that talked to Chris about transplant and put her in contact with Duke. I would like to do something for her, mail them a package or something. Please let me know what she would like, some ideas for Bailey. I know now that he likes Harry Potter...
Sending you all big hugs. This is the easy part, soon they will be home, and transplant will be behind them. I was so excited to read about the insurance approvals and Bailey canidate for transplant. He is in good hands down there, the doctors and nurses there treat you like family. Again, please let me know what I can do.
Michelle Gwin www.caringbridge.org/nj/ashleigh.ryann <moocow517@comcast.net>
Mullica Hill, NJ USA - Sunday, October 30, 2005 0:49 AM CDT
Hi Robinson Family - That's great news about Bailey. All of us at school are thinking about you. I hope we can get some pictures of Bailey in his Halloween costume. Dr. Laracy has arranged a fund raiser at Flat Breads on Tues. Most of the staff will be ordering out for lunch. I plan to go there Tues night. I can eat pizza guilt free! Have a super week end and a magical Monday! Mrs. Jawitz
Laura Jawitz <laura_j1@verizon.net>
Center Conway, NH USA - Saturday, October 29, 2005 9:28 AM CDT
Hello Bailey and Chris,just wanted you to know we were thinking of you all and hope things are going good for you.I see Todd and he has kept me updated.The boys miss you and want you to come home soon so they can come buy to see you.Chris sorry to hear about your jeans ha ha.Bailey these hugs and kisses are for you xoxoxoxoxoxoxoxoxoxoxo.
Wendy,Mark,George,and the twins Mark and Matt <Wendylou@localnet.com>
Center Conway, N.H - Sunday, October 23, 2005 6:37 PM CDT
I too just caught up on the entries...although I've been running into Todd, Brandon, and Britta on a regular basis at Conway Fire Dept and getting updates. Brandon's red hair is growing on me, and Britta's jibber-jabber and energy are infectious. Bailey and Chris, you are missed! I will be thinking about you all as the BMT date nears and hoping that Bailey does well and comes back to the Conway community soon!
Wendy Quimby <parameeyore@comcast.net>
Conway / Salem, NH - Sunday, October 23, 2005 6:32 PM CDT
Hi Todd,
Wow, I just got caught up on your entries....hang in there...thinking of you guys....and will be waiting for good news....Nelle
Nelle Killourie <nellecooper@hotmail.com>
Jackson, NH USA - Saturday, October 22, 2005 10:48 AM CDT
Hi buddy....I miss you. I hope you are taking care of mom. I heard you got to have pizza, wish i was there with you. Sorry I haven't been in touch...still trying to become a paramedic like your dad. I'll be in touch, if you get to a computer send me an email. Thinking of you, Jason.
Jason Grey <jgrey220@yahoo.com>
Fryeburg, ME - Tuesday, October 18, 2005 9:49 PM CDT
++++++++++ Praying For Bailey +++++++++
Hi Guys, Just checking in to see how things r :)
We r doing o.k. could be better.
It is getting soooooo cold here hu!? alot of places r flooded to.
K, well just saying HI :)
(((((((((((((((((((((((((((( HUGS))))))))))))))))))))))))))
Love & Prayers,Dee & Brooke
www.caringbridge.org/nh/brooke Stay Strong :)
~~~~~ The Ferrara Family~~~~~~ Thinking of you xoxoxoxo <denise69ferrara@hotmail.com>
- Sunday, October 16, 2005 7:31 PM CDT
Happy Birthday to Brandon! I can't believe that you are 15! Chris and Bailey must be getting to know Durham really well. I'll have to get tips if I ever visit the area. Hope things go smoothly from now on. We are having the Bone Marrow drive for Mrs. I on Sat. We are all thinking of you. Have a good week end. - Mrs. Jawitz
Laura Jawitz
Madison, NH USA - Thursday, October 13, 2005 10:09 AM CDT
Hi Bailey and family, I've been following your news at Duke. My sister-in-law, Cindy Alexander works at Duke and I have asked her to visit you when you become a full time patient there. She's a great resource for the area and is willing to help you while you are down there. I certainly miss seeing you at school. Take care and I'm sending you lots of positive thoughts. Love, Mrs. Waters
Robin Waters <rockin_k@adelphia.net>
Center Conway, NH USA - Thursday, October 6, 2005 7:55 PM CDT
Hi Bailey and family,
Glad to hear that things are moving forward in NC. I have a great resource for you should you ever have insurance problems again. That is the office of the ombudsman at DHHS in Concord. I have a name and number at my office which I will forward to Mrs. Tibbetts at Pine Tree for you. Red tape when you have a family crisis is a terrible thing. It is an area I have personal experience with in my own family (I had to send a child to Florida for treatment) and so I would like to help you if you get in a sticky spot again. Maureen Soraghan SAU 9 (603) 3565533 My hopes and prayers are with all of you. Each and every one needs to stay strong.
Maureen Soraghan
Conway, NH - Thursday, October 6, 2005 8:50 AM CDT
Dear Bailey & Christine, Just wanted to let you know we are thinking of you here at Pine Tree School.We miss your smiling faces! Our thoughts and prayers are with you, always. Keep up all your strength, get well soon and hurry back home and back to our class...We miss you!!
Love, Mrs. Smith
Diane Smith <Didi639@yahoo.com.>
Ctr. Conway, NH USA - Wednesday, October 5, 2005 7:33 PM CDT
HI Bailey, Lots of people at Pine Tree are keeping good thoughts for you and your family. We hope you are keeping busy and having some fun. Sounds like the pizza was delicious! Take care, and we hope you're back with us soon. Love, Mrs. Sargent
Carol Sargent <csarge51@adelphia.net>
Center Conway, NH USA - Wednesday, October 5, 2005 5:29 AM CDT
Hi Bailey and Chris!
Bailey- I'm so happy that you got to eat pizza-Yum! It sounds like you didn't waste one little crumb :-)
Chris-We are thinking of you...sounds like this is it. It is really happening. Stay strong and know that you have our support-always. Britta is coming to our house to play all weekend and we will make sure we have lots of fun. I'll try to send you some pictures. Keep in touch.
Love,
Brian, Carolyn and Andy Irwin
Carolyn Irwin <battenkill1@juno.com>
Madison, NH 03849 - Saturday, October 1, 2005 11:52 AM CDT
Hi Bailey! It sounds like you are a very busy boy these days. We miss you here at Pine Tree. I hope that you got my letter. Tonight is the Fall Family Fling. I think it is going to be pretty cold. It seems that students (and maybe staff) are going to throw jello at my face. We will have to send you pictures of that one!We are all thinking about you. Love - Mrs. Jawitz
Laura Jawitz
Center Conway, NH USA - Friday, September 30, 2005 1:41 PM CDT
Hi Bailey and Family,
We miss you at school and hope that you will be back with us very soon.
Bette Tibbetts <tibbet@localnet.com>
- Thursday, September 29, 2005 6:03 PM CDT
Hi Bailey and Chris!! Caleb,Mark and I are checking in on your website as often as we can. We miss you both very much. Can't wait til your home.
the ayers family <neenspirit@wmconnect.com>
ctr conway, nh usa - Tuesday, September 27, 2005 5:57 PM CDT
Hi Bailey and family, You are in my prayers. There was a big bone marrow drive last month in southern NH and there will be one at Pine Tree on Oct. 15. They have made great strides in typing. I will keep my fingers crossed for you. Love to you, Mrs. I.
Jane Infinger <jinfinger@pivot.net>
- Tuesday, September 27, 2005 2:28 PM CDT
Hey Bailey - Sounds like you're incredibly busy right now. What a lot you and your mom have had to do in the last few days! I hope your birthday was a lot of fun. See you when you come back to school.
Mrs. Henne at Pine Tree
Robin Henne <r_henne@sau9.org>
Ctr. Conway, NH USA - Monday, September 26, 2005 8:55 AM CDT
Hi Bailey, I also found your web site, thanks to Kelly Brown. Isn't she the BEST!!! Lots of prayers for you as you start transplant. My grandsons have had transplants at Duke for Krabbe disease. They live in Farmington, NH...not far from North Conway. I live in Pepperell, Massachusetts, near Nashua. Last week I went the truck races at Loudon. JC Stout, one of the drivers, had the Hunter's Hope logo on the hood of his truck!! It was an awesome day! I will send you an autographed picture.
Lots of hugs.
God bless,
Barbara
Barbara Forslind, Jason, Kyle and Angel Mitchy's Nana <baforslind@net1plus.com>
Pepperell, Ma. USA - Sunday, September 25, 2005 8:52 PM CDT
chris and todd.......... i don't know how you do it. i talked to courtney last night. and,although i visit bailey's page often, i feel that there must be something i can do to help. let me know..
bailey, you've showed me what strength is all about. you've taught us all to never lose hope.
stay strong, all of you
much love and prayers,
ruth ( courtney's mom)
ruth walton <ruthjwalton11@comcast.net>
woburn, mass usa - Sunday, September 25, 2005 1:08 PM CDT
Happy Birthday Bailey!!~~~
Kelly Brown from Hunter's Hope shared your web page with all of us (I am a HH volunteer)..I'll keep checking on you as you make this journey!
Christine <Luvbills@aol.com>
LeRoy, NY USA - Saturday, September 24, 2005 8:26 AM CDT
HAPPY BELATED BIRTHDAY BAILEY!!!! Hope you had a great day! You and your family will be in our prayers. God Bless. Bill, Dawn, Matthew and Marissa Shilling (members of the Hunter's Hope family) www.caringbridge.com/mi/matthewssmiles
The Shilling Family <bshilling@charter.net>
Farwell, MI USA - Saturday, September 24, 2005 6:57 AM CDT
Happy Birthday, Bailey - only a day late! I'm a friend of your grandmom Gail, and love painting with her whenever I can. I send my love and caring wishes to you and your family. Hope to meet you one day!
judy totman, Kittery Point, Maine
Judy Totman <juniperhill@comcast.net>
Kittery Point, ME USA - Friday, September 23, 2005 4:56 PM CDT
Happy Birthday Bailey! The Pine Tree fifth graders are thinking of you.
Steve Dowling <dowling@ncia.net>
Center Conway, NH USA - Friday, September 23, 2005 10:21 AM CDT
A BIG Western New York
(Rochester/Buffalo area)
~~~~~HELLO~~~~~
to Bailey......
Kelly Brown has shared your website
with all of us. I will be stopping
in and checking on you.
Carol/Volunteer Hunter's Hope <Blsfn12@aol.com>
Le Roy, NY - Friday, September 23, 2005 7:08 AM CDT
~HI Everyone~
It's me Miss.Princess Brooke :)
Bailey,You are getting so BIG.The Pics are Awsome!! I hope this xmas that Center Of Hope has another great party so we all can get together again. I have been sick & my counts r crazy. I keep getting thoose viruses with high temps. Yup, Right b-4 I went on my Wish Trip To Disney & as soon as we got home, back to the E.R once again for blood labs. Anyways, im better than last week, no fevers anymore. My Wish Trip was a BLAST!!!!!! Tireing but worth it. I met the Disney princesses. My favorite one is Jasmine :) I couldnt belive it, They Talked to me!!! It was great just glad to be home.
Yesterday was my little Brother Joey's birthday, he is ""3"" now. Next year when i go to kindergarden my mom will put him in a headstart program. So, next year my mom will have all 5 kids in school. She Cant wait for that.:)
I read that your Vacation was AWSOME to :)
You had a Great Time hu!? You guys were busy bee's. Glad it all worked out for you that you had a real good time.
My Mom thinks Your Mom is just a remarkable person. She is SO strong And holds everything together.
Christine, You are an amazing person & I look up to you as a Friend & as a mom with a sick child. It's so hard for me and some days I feel like giving up. I know I cant but when I read your journel I say" I KNOW I CAN DO THIS!!!!"
Just wanted to say Thank You For being the person that U are :)
We Hope to see all of you soon xoxoxoxoxoxoxoxo ALWAYS Thinking of you & your Family :)
Stay Strong Keep Fighting
(((((((((((((((((((HUGS)))))))))))))))))))
Love, Dee, Brooke & Family
www.caringbridge.org/nh/brooke
~The Ferrara Family, Dee,Jay,Kristen,Jessica,Anthony,Princess Brooke,Joseph :) <denise69ferrara@hotmail.com>
NH - Monday, September 12, 2005 11:44 AM CDT
Christine,
It was very nice to talk with you yesterday and thank you for sharing Bailey's web page with me. Please as you think of anything else or anything I can do to assist you, let me know. I look forward to meeting you soon.
With HOPE, Kelly Brown
Kelly Brown <kelly@huntershope.org>
Durham, NC - Saturday, September 10, 2005 12:20 AM CDT
Baily,
HI there! We are your friends from sunny Florida and we want to say a big HELLO! We are friends with "Auntie Katie" and we want you to know there are 3 little boys down here that send you big hugs. Next time you look up at the moon, we will be looking too and we will give you a BIG HIGH FIVE okay? We send our love.
The Summers Family (Melany,Brian, Justin, Nicholas &Christian)
The Summers Family <bpsummers@mindspring.com>
Davie, FL USA - Friday, September 2, 2005 11:48 AM CDT
Thank you Robinson Family for being such a wonderful part of our lives and for teaching us so much. Lots of love!!!! The Ayers Family, Mark-Nina-and especially Caleb.
nina ayers <neenspirit@wmconnect.com>
ctr conway, nh usa - Tuesday, August 23, 2005 8:47 PM CDT
Hi Todd and Chris,
I was looking at my favorites file and find your site. I have read your entries and know you both are providing wonderful time for your family. I thought of Bailey when I was learning about the adrenal glands; its associated diseases, hormones and symptoms. You all are so strong. Hope to see you around town, I am home from school for 2 weeks! Remain strong and let me know if I can help in any way. Nelle Killourie cell 603-986-9163
Nelle Killourie <nellecooper@hotmail.com>
Jackson, NH USA - Thursday, August 18, 2005 12:12 AM CDT
~~Hey You Guys~~
I just read your exciting, Awsome Vacation that you had :)
WOW, You all had a Blast hu? Cool. As I was reading the story i just pictured all of you doing everything that u said you all' did. I'm so happy to hear it all went GREAT!!!! I can't wait for Brooke's wish, it's coming up soon. Cant imagine no bothering phone calls, no time limit to get "things done",wake up early, go to bed wheneva, NO DOCTORS, just the normal taking meds part. I'm kinda, well very much having anxiety. I'm just so used to doing the routine stuff all the time. I'm sure i will get used to "worry free for a week".lol. I am Sooooo happy to know that you all had the Best time :)
So sorry about your friend :( That has happend to me a few times. It just plain o'l sucks! I will NEVER understand Life,never.
xoxoxooxoxoxoxoxoxooxoxoxoxoxoxoxoxoxooxoxo
Take Care Keep Fighting Bailey
~Hope to see you all of you soon, Im sure Britta is walking & talking now. She is such a living doll :)
Say Hello to everyone ,from everyone here.
Take care Prayers to you & your friend
~Dee
~~ Princess Brooke's Page ~~
Hey, I have kitten's, do u want any????? Please tell everyone u know,k. :) thank you (((((((((((hugs))))))))
The Ferrara Family...Dee, Jay, Kristen, Jessica , Anthony, Princess Brooke & Joseph <denise69ferrara@hotmail.com>
n.h ~~~U.S.A~~~ - Wednesday, August 17, 2005 9:51 PM CDT
This message is especially for Chris. Thank you so much for all you do for our family and for the way in which you do it. You ease us all over the rough spots and help us to understand. Your message to live life fully is right on target and we are very blessed. We love you.
Grammie and Grandpa
Kittery , ME USA - Monday, August 1, 2005 10:33 AM CDT
Hi Bailey, What exciting news about your tooth! It sounds like you are having a busy and exciting summer. I can't believe that you will be in second grade in the fall. I've been busy this summer too. I have a grandson who is 5 months old and have been spending time with him. Enjoy the rest of your summer and stop by the kindergarten room when school starts and say hi. Love, Mrs. I
Jane Infinger <jinfinger@pivot.net>
Chatham, NH - Friday, July 22, 2005 7:47 AM CDT
HI Bailey,
How r u enjoying the nice weather. Its to hot 4 me. I like to play games on the computer. My mom just showed me how to get to PBS kids.org. You should check it out I have a Blast!!!! I am going to Dartmouth Hospital on Friday. I need to get my spinal-tap done. I get thoose done every 12 weeks. So, you like swimming. I do to but now we dont have a pool cuz it poped. :( My mom wont do the "lake" thing. She gets very nervose around water with all her kids. Too many to watch at the same time. Plus alot of germs for me to be around cuz my counts havnt been great for long. (((((hugs))))) Hope to see you around
xoxoxoxoxox Love,Brooke & Dee
~~~xoxo Princesses Brooke's Page xoxo~~~ <denise69ferrara@hotmail.com>
~Stary Strong~, - Monday, July 11, 2005 4:17 PM CDT
Dear Bailey, Todd and Chris,
I just wanted to let you know how much admiration and love I have for you. You are so SO brave, and I want you to know I thik of you always. Please, if ever you need anything I can give...let me know. You are in my heart forever, and take care.
Bailey...you may never fully understand the meaning your life has for so many. Thank you for teaching us what you have, and showing that every minute of every day is more precious than the last.
Love,
KC Root
KC Root <kaciebean2@hotmail.com>
Montreal, PQ Canada - Monday, May 23, 2005 2:13 PM CDT
bailey........i met you when you were just a little guy a few years ago at christams. you are a brave soul! we can all gain strength from you and your family. you are all in my thoughts and prayers.
ruth ( aunt courtney's mom) they'll be seeing you soon!!
ruth walton <rjwalton11@aol.com>
woburn, ma usa - Saturday, May 7, 2005 7:01 AM CDT
Hi Bailey, I love the pictures on your web site! I saw Mom with Brita the other day at school. She is getting so big! I hope you had a great vacation. Love, Mrs. I.
Jane Infinger
Chatham, NH USA - Monday, April 25, 2005 7:54 PM CDT
WOW....what a sensory overload of what Bailey has and how it has changed your family's life. Remember, God doesn't give us anything we can't handle....somehow.
Andrea Pastelis <apastelis@agtech.org>
Rochester, NH - Friday, April 22, 2005 8:00 AM CDT
Hi,
We live in Worcester MA. My son Joey was diagnosed with Neonatal Adrenal Leukodystrophy at age 18 months. He is 18 now. Our website is www.joejohnson.net
Joseph P. Johnson <merchant@joejohnson.net>
Worcester, MA USA - Sunday, April 3, 2005 12:24 AM CDT
Hi Bailey
This is just a wee message from all of Christopher Keenans family in Scotland sending you lots of love and prayers. Keep fighting
Yvonne Sheekey <Evesheekey@aol.com>
RHU, Scotland - Thursday, March 31, 2005 4:21 PM CST
Hi Bailey and Family,
I hope you are feeling a little better today we miss you at school. I also wanted to tell you that I would be very proud and happy to sponsor you in the Jump Rope for Heart event. You can put me down for a $10.00 donation. When you get back to school come to the office and see me and I will give you the money. Take care and say hi to the rest of your family.
Mrs. Bette Tibbetts
Bette Tibbetts
Center Conway, NH USA - Tuesday, March 22, 2005 5:33 PM CST
Hi, Bailey! My name is Sue and I went to Grade School with your Grammie Gail, which means we have known each other for a long, long time. We have remained "Pen Pals" for all these years and now I would like to be your Pen Pal, too. I am sending you a kazillion hugs (I am not real sure how many that is, but it's alot)!!!! Take care, Bailey! Love to you and all your family. Sue
Susan Zirkle <SwhoZ52@aol.com>
Rantoul, Il USA - Monday, March 21, 2005 1:39 PM CST
Hi Bailey. It was great to see your smiling face back at school yesterday! I'll bet you and Brandon are out making your own snow castle today. You may be able to ski until July 4th this year! Have a super weekend. Mrs. J.
Laura Jawitz
Madison, NH U.S.A. - Saturday, March 12, 2005 8:43 AM CST
WOW! I had no idea we had a videographer in the family! Those new pictures are fabulous! Thanks for keeping all of us up to date! Hugs!
Grammie <gs7877@yahoo.com>
Kittery, ME USA - Friday, March 11, 2005 9:48 AM CST
Hi Bailey,
Mrs. Jawitz thought we weren't going to have any more snow days...ha! Hope you are doing something fun with this extra day off from school. See you soon.
Ms. Erickson (your neighbor across the hall at school)
Lynn Erickson <laerick@ncia.net>
Center Conway, NH USA - Tuesday, March 1, 2005 12:09 AM CST
To Bailey , Brandon and your entire family... You're in our thoughts and prayers. We know what you are all going through. Hugs to your whole family. If you ever need someone to chat with, we're here for you.
http://www.andrewbeattieald.com
Trev <alddad@yahoo.ca>
Dunnville, Ontario Canada - Sunday, February 20, 2005 6:08 AM CST
Hi Brandon, You are a very very great big-brother. We are all lucky to have you in the family! We're proud of you. Hugs,
Grammie
Kittery, me o3904 - Thursday, February 17, 2005 11:19 AM CST
Hi Bailey and Brandon - wow 2 snow days in a row. How lucky can you get! I hope that you all were able to have some fun and that everyone is feeling better. Brandon - I just keep thinking how lucky Bailey is to have such a wonderful caring brother. Thanks for being you! Bailey - see you on Monday - no more snow days or we'll be in school all summer! Mrs. J.
Laura Jawitz
Madison, NH 03849 - Friday, February 11, 2005 4:29 PM CST
Hi Bailey....How high can you count? Here's a hug for every snowflake that is falling today! (That a lot!!) Love, Grammie
Grammie
Kittery, ME USA - Thursday, February 10, 2005 9:45 AM CST
Hi Bailey, I hope you are having fun on your snow day! See you at school. Love, Mrs. I
Mrs. I <jinfinger@pivot.net>
- Thursday, February 10, 2005 8:51 AM CST
Robinson Family,
Thanks for sharing your story. We also are a family affected by ALD. Our oldest son was diagnosed and passed away in 2000. We have a 7 year old who is also a carrier and on the Lorenzo's Oil and diet. He is an amazing little guy, counting his own fat grams throughout the day. These little children afflicted with disease are special kids. May your life continue to run smoothly and have a happy ending for Bailey.
Wendy <kwhorton8236@msn.com>
Salt Lake City, UT USA - Thursday, January 27, 2005 6:22 AM CST
Hi B - B and B (plus T and C!)
It's SNOWING more here and Grandpa is outside shoveling out our neighbor's car for her - she is stuck in the driveway! If it snows much more Grammie is going to have to learn to ski - will you teach me?
Here's a big WRAPAROUND hug for you...and one of Grammie's sloppy wet kisses! XXXXXOOOOOOOXXXXXX!
Grammie <gs7877@yahoo.com>
Kittery, ME usa - Wednesday, January 26, 2005 1:26 PM CST
Hey, We met you at the center of hope's christmas party.
My name is Denise(I am the mom) Anthony is my 7yr old who was there playing musical chairs & the egg passing game with you. Brooke who is my 3yr old & joey who is 2. They played games with you also. Jessica my 12yr old didnt play any games but made an awsome wreath with my cousin Gina while you kids were having a blast :)
my oldest Daughter Kristen didnt make it to the party. I know in a couple of weeks they are having another get together at the center of hope for Valentines Day. That should be a fun time. Hope we all see you there. Say hello to your mom & Britta for us. We met them there to.
Stay Strong Little Man
(((((hugs)))))
Love, Dee, Jay, Kristen, Jessica,Anthony,Brooke,Joseph See U Soon :)
xoxoxoxooxoxoxoxooxoxoxoxoxoxoxooxoxoxoxoxoxoxoxoxoxooxoxox
www.caringbridge.org/nh/brooke <denise69ferrara@hotmail.com>
www.brookeferrara.com, NH USA - Monday, January 24, 2005 6:08 PM CST
Hi Bailey, We miss you at school, and hope you are back to brighten our halls soon. Say hello to your awesome older brother for me, and know that your family is in my thoughts and prayers. Love, Carol Sargent
Carol Sargent
Center Conway, NH USA - Saturday, January 22, 2005 5:37 PM CST
Hi Bailey and family, I miss seeing you around school. Hope you are able to come back soon. I heard that you've been skiing a couple of times! That's awesome. Stop by kindergarten and say hi to Mrs. Waters and me soon. Love, Mrs. I.
Jane Infinger
Chatham, NH USA - Thursday, January 20, 2005 3:53 PM CST
I just finished reading your page for the first time, my thoughts and prayers are with Bailey and you.You are all so wonderfully strong and its great to read the daily journal. We all miss Bailey at school and hoping he will be back soon.
Diane Smith <Didi639@yahoo.com>
Ctr. Conway, N.H. U.S.A. - Wednesday, January 19, 2005 4:58 PM CST
I just visited your web site for the fisrt time and want you to know that I think you are all truly amazing! My thoughts and prayers are with you.
Bette Tibbetts
- Wednesday, January 19, 2005 8:20 AM CST
Hope to see Bailey back at school soon.
Jill Davis <jilldani@adelphia.net>
- Wednesday, January 19, 2005 7:43 AM CST
You are all in my prayers!
Buffie Bohmfalk
Berlin, NH USA - Monday, January 17, 2005 8:24 AM CST
Hi Todd, I haven't seen you since you were a kid in Mont Vernon, so I have only seen your beautiful family in pictures. My prayers are with you all. Celebrate each day. Best regards, Gail Vaughan (Heidi and Jonathan Metzger's Mom)
Gail Vaughan <hautboise@msn.com>
Boise, ID 83709 - Monday, January 17, 2005 0:56 AM CST
May no day be too short to fit love and laughter into it. May there be no friends too busy for you and no family member who doesn't greatly love you. Quotation from Mary Klock Labdon
Gail E. Kennedy <jas-gail@comcast.net>
Exeter, NH USA - Monday, January 10, 2005 4:06 PM CST
As a new mom to a young child who was diagnosed with ALD I appreciate you taking time to share your story with me and so many others. Bailey and your whole family are in my prayers
Melissa S. <melissas93@msn.com>
Spokane, WA - Sunday, January 9, 2005 6:57 PM CST
This information was so important for my understanding of Bailey's illness and also to find out your coping ways, and what you have been doing over the holidays. I thank you for creating this website and Gail for providing me with the access information. I look forward to learning more in the future and wish you all a strong, caring and coping 2005. My heartfelt prayers and wishes for your contiinued caring/loving community go with you all!
Judy Totman <juniperhill@comcast.net>
Kittery Point, ME USA - Wednesday, January 5, 2005 7:50 PM CST
Hi, Bailey, Brandon, Britta, Todd, and Chris,
We wish so much that we could have been home with you for Christmas. Gail and Stephen sent us pictures of all of you opening presents - it looked like so much fun!
Just a note to say hello and we love getting updates on your website. What a wonderful idea. We love you all very much and think of you daily here in Colorado.
With love and hugs,
Aunt Courtney and Uncle Chad
Courtney Robinson <courtrobin@comcast.net>
Frisco, CO USA - Monday, January 3, 2005 8:20 PM CST
Our grandchildren and all our family send you caring and prayers.
Barbara and Dick Adams
Barbara Stevens Adams
Portsmouth, NH USA - Monday, January 3, 2005 1:01 PM CST
I know how hard and devastating this disease is and if you ever need someone who is walking in your shoes to talk to drop me an email take care
monica keenan <monicakeenan@aol.com>
durham, nc - Sunday, January 2, 2005 11:12 PM CST
So sorry - I just have no words - I can't imagine what you are going through.
Sue Medor <smedor@verizon.net>
Manchester, NH USA - Sunday, January 2, 2005 6:34 PM CST
Hi, Bailey. I think of you, pray for you, and wish you all the best VERY often! I'm so glad to have this website so I won't have to bother gramma Gail all of the time! Good wishes and love to you and to your family. Patty Woerner
Patty Woerner <Pattywoerner@comcast.net>
Madison, CT USA - Sunday, January 2, 2005 11:40 AM CST
Hi Bailey,
Here's a BIG hug and kiss from Grammie and Grampie...plus a tickle!
Gail and Stephen
Kittery, ME USA - Sunday, January 2, 2005 11:30 AM CST
i hope you are all well,you all are in our pryers,thoughts.
love,tracy,brian,tricia,matty
tracy evans <birthmothersofnh@yahoo.com>
dover, nh us - Saturday, January 1, 2005 11:14 PM CST
I just want to let you guys know that i think of you and Bailey everyday, I thank you for giving me the pleasure to be apart of Bailey's life. He makes me smile everytime i see him and I am always astounded at the amount of energy he has. I look forward to reading about updates and changes in his condition and will be there for you at the drop of a hat. I love you all, and will be there for you like you have been there for me.
Jason Grey <jgrey@yahoo..com>
Biddeford, ME - Wednesday, December 8, 2004 1:16 PM CST
After reading your web page I realized how very special Bailey is and how lucky he is to have such a wonderful family. My prayers are with all of you, God bless you!
Robin Gagnon <robing@surfglobal.net>
Bath, NH USA - Thursday, November 18, 2004 9:01 AM CST
Great to hear that Bailey is handling things well. You are all in our thoughts and prayers!!
Jon Bouffard <jbouffard@bluemoo.net>
- Thursday, November 11, 2004 12:22 AM CST
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