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Dear Restemayer Family!



Wishing your family a very Merry Christmas and may you have a very happy New Year.
Thanks for the lovely card. I really love Alison's painting. Can't wait to hear all about the exhibition.
Abeerah, Khansa & Zahra

I wanted to stop by ans wish you all a very Blessed Christmas!

Love and hugs,
Patty and Jesse

Christian Glitter by www.christianglitter.com

just wanted to come by and say merry christmas and i hope the new year brings good health and i am sure katilynn is watching over allison and the rest of the mps babies hugs kathy mom to angel katilynn

Hi Alli!

I just turned my MPS calendar to December and noticed a very beautiful calendar girl! Wow! You're famous! I hope you're having a good December and that you'll have a happy Christmas too!

Hugs,
Kitty <><

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL

Love the summer pictures! Looks like they are having a great time. Scotty is not a big fan of cold water even when it's very hot outside. But give him a hottub and he's in it in a second. I know this is why Scotty has done so well physically so I hope you see some wonderful results with Ali and her hydrotherapy.
Have a great 4th of July
Hugs,

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL

Hey Jenn,

Happy MPS Day! Going to try a link :) So if I mess it up delete it OK. Will call you later after the nurse comes back. Slawson website
Tami <tlslawson@aol.com>
- Wednesday, May 16, 2007 4:08 PM CDT

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Wow! Had a wonderful day yesterday telling EVERYONE who walked into the ice cream store about Alli! Wore her picture with the ribbon on my shirt. It was a great day! Hugs to All, Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, May 16, 2007 9:09 AM CDT

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Thinking of Allison and all MPS kids today. Have a great MPS day with Allison.


Tayyaba, Abeerah, Khansa & Zahra.
NJ <mps_stinks@yahoo.com>
- Tuesday, May 15, 2007 5:11 PM CDT

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hi

my niece jess has recently been diagnosed with hurlers's
syndrome and readin allison's(and her friends) sites has
giving us all real hope and encouragement

hopefully we will be be getting a website for jess up and
running so we can become friends and let you all know how
things are going

take care

bob
bob <robertmorrice@hotmail.com>
edinburgh, scotland - Tuesday, May 15, 2007 4:18 PM CDT

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Happy MPS Day, I tried to sign this morning but for some reason it never posted. Thank you Jenn for coming into our life when we learned Cade has MPS, your friendship has meant so much to me. Hugs to Allison!
Love,
Chris Morrissey
Chris Morrissey <crookiemorsi@yahoo.com www.caringbridge.org/il/cademateo>
Kewanee, Il USA - Tuesday, May 15, 2007 2:45 PM CDT

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Happy National MPS DAY Alli!

Your friend,
Lexi
Lexi <ribbitlrk13@hotmail.com>
Bismarck, ND United States - Tuesday, May 15, 2007 2:34 PM CDT

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Hi Mom and sister Iove you,

Love
Ashley
Ashley Restemayer <ashley8@bis.mico.net>
Bismarck, ND U.S.A - Tuesday, May 15, 2007 2:01 PM CDT

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Happy MPS Awareness Day!
Jennifer Restemayer <jennmarie@bis.midco.net>
Bismarck, ND USA - Tuesday, May 15, 2007 1:55 PM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, May 15, 2007 8:34 AM CDT

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Hi Jenn,
Thanks for the comment in my guestbook, what a pleasant surprise!!!! I've followed Alli's journey for so long now~you guys have come so far! I always have a special fondness for kids with MPS disorders as the little boy that I nannied had Hunter Syndrome. I hope you had a wonderful Mother's Day! Hugs to you!!!

Amy
www.caringbridge.org/visit/gerryheidt
Amy <suzyhousemouse@aol.com>
Billings, MT USA - Monday, May 14, 2007 1:56 PM CDT

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HAPPY MOTHER'S DAY JENN!!! You are my hero and I can only hope and prayer to be as wonderful as a mother as you... your girls are so very blessed.


Kristin Krumwiede <kckrumwiede@bis.midco.net>
Bismarck, ND USA - Sunday, May 13, 2007 10:36 PM CDT

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Happy Mother's Day! Thinking of you today and wishing you all the best. May today be filled with much love, joy, peace and happiness.
All my love,
(mom to Kaylee in Heaven & Cassie)
Stacey Krause
- Sunday, May 13, 2007 5:00 AM CDT

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Hello Jenn and Allison,
It's been too long since we last had contact and I was so happy to see that you were successful in helping get the bill passed in your state. Congratulations, you are a true warrior mama!!
Take care,

Jenn Elder <jennelder_7@hotmail.com>
Stirling, on Canada - Wednesday, May 9, 2007 11:36 PM CDT

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Happy Infusion Day Alli! I will call you later Alligator!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, May 6, 2007 6:59 AM CDT

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It has been a while since I stopped by to say hello. Thank for your legislative efforts; your plate is full with your family, a special needs child and taking on Washington! Our daughter Michelle (MPS1) is doing great. We went through the BMT process and she is now 18 months post BMT. She started preschool and seems to love it.

All my best - from California.
Lynn Hopkins
Long Beach, ca - Friday, May 4, 2007 3:00 PM CDT

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Hi Sweety, Have a great last day of school for the week today! Love You, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, May 4, 2007 6:37 AM CDT

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Hey Girls and Jim, The weather here is beautiful but I know you have had some nice days too! I love Spring! Miss you all!!

Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, April 29, 2007 6:21 AM CDT

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Hey Jenn,
I was telling my book club all about your succcess with the Medicaid buyout bill last night! They were all so impressed! You've worked so hard, now MANY famiiles in ND can benefit from your efforts, you should be proud! KUDOS!

Aunt Jessica <jshu21@msn.com>
osseo, WI USA - Thursday, April 26, 2007 7:59 AM CDT

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Hi All, Just checking to see the smiles!!

Love, Mom
Janelle <janellekunellis@yahoo.com>
- Tuesday, April 24, 2007 8:57 PM CDT

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Jenn and Alli, I have the same picture on my screen saver! Alli and the Governor!! Very nice! Congrats on all the work.
Love, Mom
Janelle <janellekunellis@yahoo.com>
- Saturday, April 21, 2007 9:46 PM CDT

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I am so glad that the bill passed for the sake of our children. May we be able to get the government to provide more funding. God Bless
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Layton, UT us - Tuesday, April 17, 2007 3:43 AM CDT

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A sunny hello to All, Hope ND had a nice warm day as well!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, April 15, 2007 6:23 AM CDT

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Hi All! These last two weeks have been a race! Missing you all and I am so proud of you Jenn. Standing up and fighting for what you believe it and doing it all the right way! Way to Go!!!!!
Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, April 11, 2007 5:56 AM CDT

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Happy Easter

Love,
Anita and family
www.caringbridge.org/visit/littleangel

Anita <lpn_06@yahoo.com>
- Sunday, April 8, 2007 7:59 PM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 7, 2007 9:50 PM CDT

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Have a Blessed Easter!
Love,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, April 7, 2007 8:02 PM CDT

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Make your Comments HEARD using COMMENTYOU.com hi ali and jen i am so glad to hear the good news and i am happy that ali is feeling better.i know i dont get to visit very often but i think about you guys alot sending you guys lots of hugs and kisses have a happy easter hugs kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, March 31, 2007 9:59 PM CDT

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What great news! I know you have been working hard on helping get that bill passed! FINALLY RESULTS! YIPPEE
Hope Allison is feeling better....give her hugs from us. Scotty man just loves looking at her picture on his message board!
Hugs,
Kim & ScottyMPS II <cottons@earthlink.net>
Modesto, CA - Saturday, March 31, 2007 10:56 AM CDT

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Happy 200th infussion Alli!!!!!!!!!! Wow What a great celebration!!!!!! Caroline wishes she could celebrate with you!!!! She wants you to know she Loves you!!!
Have a wonderul Day Sweet Alli!!!!
Love,
Kim Caroline and Ty
Kim Downham <momtoty@yahoo.com>
Houston, - Sunday, March 25, 2007 11:47 PM CDT

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Allison! You are just too darn cute! I hope all is well with you.

Hugs to you!!!!!!

Amy
www.caringbridge.org/visit/gerryheidt
Amy <suzyhousemouse@aol.com>
Billings, MT USA - Monday, March 19, 2007 11:13 AM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, March 16, 2007 10:26 PM CDT

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Hi Baby Doll! I so like talking to you on the phone. John loves talking to you too!! He loves you too! Hugs to you and I will call you again very soon.

Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, March 4, 2007 9:48 PM CST

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Hi Allison & Jennifer
I was so surprised to see the cutest picture come up on Scotty's new bulletin board today! You are just too cute for words! Thanks for stopping by Scotty's website.
Hugs,
Kim & Scotty <cottons@earthlink.net>
Modesto, CA - Sunday, March 4, 2007 8:59 PM CST

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Just wanted to stop by and say Hi! Wish I where goign to be seeing you in DC! Love, Erica
Erica T. www.caringbridge.org/wi/ericathiel <scheiecat@yahoo.com>
Beaver Dam, Wi - Wednesday, February 28, 2007 10:47 AM CST

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Thank you so much for sharing Allison's slide show. Anisa liked the pictures!
Jenn Elder <jelder4@cogeco.ca>
Peterborough, on Canada - Monday, February 26, 2007 9:02 PM CST

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Hi Baby! Have a great day...I'll call you later!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, February 25, 2007 7:40 AM CST

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Happy Birthday Allison!
I hope you had a fantastic day!
So good to see the new pictures!
Love
Christy Hirschey
christy hirschey <kchirschey@msn.com>
- Friday, February 23, 2007 10:25 PM CST

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Hello,
Just stopping by to say Hello and to check in on Allison!
Jenn Elder <jelder4@cogeco.ca>
Peterborough, on Canada - Thursday, February 22, 2007 9:34 PM CST

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Happy Mardi Gras! Off to see huge parades in New Orleans. I will get more and more and more beads!! Want any?? It just makes me smile to see the video. Such a smile Miss Allison! My 6 year old!!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, February 20, 2007 7:54 AM CST

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Have a great start to the week girls! Went to Mardi Gras parades yesterday and got you tons of beads!!!!
Love, Nana
Janelle <Janellekunellis@yahoo.com>
- Monday, February 19, 2007 6:38 AM CST

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Yay! Way to advocate mom!! Isn't it sad that us parents of children with disabilities have to "fight" for every little thing? I hate it.

We will be coming to Bismarck in June and I sure would love to meet your family! We are going to Wisconsin for a wedding then hopefully back to Bismarck for a few days of visiting. I'd love to share with you about "my" MPS kiddo (remember, I nannied for a little boy with Hunter Syndrome) and meet the famous Miss Allison!

We've had flu bugs/nasty colds here for some time and I am about O.V.E.R it. Think Spring!

Amy
www.caringbridge.org/visit/gerryheidt
Amy Heidt <suzyhousemouse@aol.com>
Billings, MT USA - Sunday, February 18, 2007 12:50 AM CST

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Just checking in on my Valentines!! Your birthday party and T-Ball outing looks like tons of fun. Jenn-I love the videos!!!
Hugs and Kisses, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, February 18, 2007 5:34 AM CST

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I hope all you ladies have a Wonderful Valentine Day!

Hugs and love,
Patty and Jesse MPS III

PattyT <wordinedge@aol.com>
Balto, MD USA - Tuesday, February 13, 2007 7:39 PM CST

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Allison-
We hope that you had a birthday as special as you are. Did you get the card Delainey sent you? She has so much fun coloring the picture for her special friend :)
Our thoughts and prayers are with you always
LOVE-The Krumwiede Family
www.caringbridge.org/visit/shelbyandaverykrumwiede
Kristin Krumwiede <kckrumwiede@bis.midco.net>
Bismarck, ND USA - Monday, February 12, 2007 8:41 PM CST

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Good Morning Alli and Ashley! Have a great day at school today and you lucky ducks get to see your Aunt Jessica on Tuesday! I'll talk to you when she is with you.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, February 12, 2007 6:07 AM CST

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Happy Birthday Alli!!!!!!!!!!!! We hope you had a wonderful birthday party!!!! Caroline wishes she could have been there to party with you!!!!!!!!! Happy Happy 6th!!!!!! You are getting so big!!! I can hardly believe it!
Love, Your friends Caroline, Ty, and Kim

Jen, I am so sorry to hear about your grandmother.My thoughts and prayers are with you. Love, Kim

Kim Caroline and Ty <momtoty@yahoo.com>
Houston, - Sunday, February 11, 2007 9:58 PM CST

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Hi Sweetheart! I will call you later this morning to "hear all about it"!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, February 11, 2007 6:40 AM CST

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Alli, You are partying down right now and I bet you are having a BALL! Wish I was there...but it's too cold!! Hugs Baby Girl and I will call you for a full update tomorrow.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, February 10, 2007 2:08 PM CST

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Happy belated Birthday, Allison!
Jennifer, so sorry to hear about your grandmother. My condolences.
Lisa Post <ltjpost@yahoo.com>
Shelton, CT - Saturday, February 10, 2007 8:16 AM CST

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Sorry to hear about your Grandma!! Also, Happy Birthday!!!!
JohnnieRae Geving <jrgeving@hotmail.com>
Dunn Center, nd usa - Friday, February 9, 2007 3:18 PM CST

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Hi Baby Doll! Sure fun talking to you today. I know that you are excited for your party. what a lucky girl you are!! Hugs and Kisses, Love Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, February 8, 2007 8:47 PM CST

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I am so sorry about your grandma. I hope that Allison had a wonderful Birthday. 6 Years Old!!!! Wow!!! How exciting. Such a popular little socialite!! Poor Andrew never gets invited to go anywhere. I wish he had lots of nice friends like you do and nice behavior to go along with it. I hope you all are staying warm. It has been sooo cold here (for us anyway) It has been 4 degrees for two morings in a row. We are supposed to be having a small warm up soon but the with is whipping around like crazy right now making it so much worse. Love, Anne
Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com>
Boonsboro, md USA - Thursday, February 8, 2007 11:06 AM CST

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, February 8, 2007 9:23 AM CST

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Wishing you well. Sorry to hear about your grandma.
maria tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
layton, ut 84041 - Thursday, February 8, 2007 2:46 AM CST

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Hi All, I know it is C-O-L-D there. Bundle up!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, February 7, 2007 9:06 AM CST

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I hope you had a great day today.

Tayyaba, Abeerah, Khansa & Zahra

NJ <mps_stinks@yahoo.com>
- Monday, February 5, 2007 11:29 PM CST

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HAPPY BIRTHDAY TO MY BABY DOLL!!!!! 6 HUGS, 6 KISSES. 6 I love yous....doesn't even come close to my love for you Alli. Hope your day was extra special!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, February 5, 2007 7:29 PM CST

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Happy Birthday Allison!!!
Nolan sends lot's of Hugs and kisses!!!
nancy ramsey <samdramsey@comcast.net>
Erie, Co - Monday, February 5, 2007 6:09 PM CST

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Happy Birthday to you!
Happy Birthday to you!
Happy Birthday Dear Allison,
Happy Birthday to you!!

I hope you have the best birthday ever sweetie!

Amy
www.caringbridge.org/visit/gerryheidt

PS...I'm so sorry to hear about your grandma. Please accept my deepest condolences.

Amy <suzyhousemouse@aol.com>
Billings, MT USA - Sunday, February 4, 2007 7:03 PM CST

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Jenn, I'm so sorry to hear about your grandmother's passing, it's never easy, no matter how old you are. Love and many prayers to you through these next few days and weeks. Hugs to the Girls.

Brenda Haggett I-Cell mom <Jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, ny usa - Sunday, February 4, 2007 3:37 PM CST

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So sorry about your grandma Jenn, may memories of time shared ease your pain...Hope all is well with Ali and the port is working good....Happy Birthday a day early Ali, hope you have a wonderful day and get lots of presents. Your in our thoughts and prayers.
Love,
Chris Morrissey Cade Mateo's Nana
Chris Morrissey <crookiemorsi@yahoo.com www.caringbridge.org/il/cademateo>
Kewanee, Il USA - Sunday, February 4, 2007 12:23 AM CST

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Oh My Gosh! Alli is almost 6 years old!!!! Happy Birthday Baby Doll...in one more day!
Love, Nana and John
Janelle <janellekunellis@yahoo.com>
- Sunday, February 4, 2007 10:12 AM CST

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Jennifer, Blessings for your Grandmother Evelyn. I know that you meant so much to her. She is in God's hands now and I just know that she is happy finally rejoining her husband. Hugs to you Honey. I love you.
Mom
Janelle <Janellekunellis@yahoo.com>
- Saturday, February 3, 2007 9:24 PM CST

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Hi All Most Birthday Girl! I will call you later today to see if you are ready to turn 6!!!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, February 3, 2007 6:36 AM CST

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Holy buckets Alli....today is the 1st of Feb. In five more days I know a little girl who will be six years old!!!! Warm hugs and lots of Kisses!! Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, February 1, 2007 9:28 AM CST

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Alli, Alli....Guess what I put into the mail yesterday??? A present for my baby? Yes, you guessed it!! Only a week left of being 5 years old...Miss you Honey! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, January 31, 2007 7:57 AM CST

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Hi Baby Doll! Just checking in to see if you are counting down the days till you are 6 years old? Holy Buckets!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, January 30, 2007 7:35 AM CST

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Just realised we hadn't checked in on your cute face for ages ! Hope your port is OK now? Take care now ! Laura and Will(mps2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Monday, January 29, 2007 1:12 PM CST

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Hey there sweetie pies!!! Happy Birthday Big Girl!!!! Hope your port is doing better!!! We miss you all and love looking at your smiling faces every day!!! Love and Hugs and I will add your dad to our prayers Jenn.
The Haggett's, John, Bren & Zachie
Brenda Haggett I-Cell mom <Jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, NY - Sunday, January 28, 2007 11:32 PM CST

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Just checking in on Alli. I hope she stays well and doesn't get that cold from the other kids! Praying the port stays good too! I love the nice summer picture, makes me feel warm even though it's cold here too!

Hugs and love to you all,
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, January 27, 2007 6:01 PM CST

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Just checking in to see my smiling almost 6 year old!!!! Have a great day in school Alli and Ashley!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, January 25, 2007 9:06 AM CST

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Hi Almost Birthday Girl!!! I am counting down. Can you believe it? Little Baby Alli will be six years old soon!!! Hugs and Kisses, Nana
janelle <janellekunellis@yahoo.com>
- Wednesday, January 24, 2007 10:02 AM CST

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Sending hugs and kisses from Oklahoma...yes it has been cold here long enough, too. Prayers for Allison are on their way. Riley is doing fine...just the same old chronic graft vs host of the skin. Dr. Peters is taking great care of him. Enjoy the rest of winter, it will be over before we know it.
xoxoox.........
Jeanne
Jeanne Joiner <jeannejoiner@hotmail.com>
Del City, OK USA - Tuesday, January 23, 2007 11:24 PM CST

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Hello All, Dashing to take my Mom to a Dr. appointment but I had to take a look at the smiling faces of my babies! Miss you, Love, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, January 23, 2007 8:07 AM CST

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Hi All, Tried to call a few times today. I know you guys are busy. How was the basketball game Ashley? TOY!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, January 20, 2007 8:30 PM CST

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Good Morning, Cold again here but sending warm wishes to all. Hope that port is working better!!!
Love, Nana
Janelle <Janellekunellis@yahoo.com>
- Thursday, January 18, 2007 6:42 AM CST

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Hi All, I just love that summer pic of Allison. So girl like and cute!! You have sent that cold weather here and today's highs will not get out of the 50's. Hot tub felt good this morning with the temp at 40!!!!
Planning to head back to the Dakota's in May. I sure miss my babies!!
Hugs and Kisses, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, January 17, 2007 9:33 AM CST

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We hope that you guys had a safe trip to Grand Forks and into MN. We are so luck to have such great "friends" as you guys!!!
We hope the port holds out for a bit longer....
www.caringbridge.org/visit/shelbyandaverykrumwiede
Kristin and Chad Krumwiede <kckrumwiede@bis.midco.net>
Bismarck, ND USA - Sunday, January 14, 2007 1:16 PM CST

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Hi Alli and Ashley! Just checking to see your pretty, happy faces!! Thinking you of today as I start my day. Love You!!! Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, January 10, 2007 9:59 AM CST

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Wow! I just watched (again) the video Tami did for you. I have not watched it for awhile...one forgets the miracle of a drug! Hugs to All! Thinking of you all often!!
Janelle <janellekunellis@yahoo.com>
- Thursday, January 4, 2007 10:58 AM CST

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Thanks so much for checking in on Avery and Shelby :) It is nice to see some more "Bismarkians" :) We will certainly be keeping you all in our prayers. We should try and make a play date for Delainey and Allison :)Keep in touch!
Kristin and Chad Krumwiede <kckrumwiede@bis.midco.net>
Bismarck, ND USA - Wednesday, January 3, 2007 4:16 PM CST

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Hi Allison! I can't believe 2007 is here already. HAPPY NEW YEAR! Faith wanted me to say hi to you and tell you she can't wait for you to come over for a play date. I hear you like school. Faith gets to start kindergarten this next year and is very excited. Hope you all have a great week. I asked Faith if she has anything else to say before we go and she wants to say "I want to come to your birthday when you turn six and you can come to mine when I turn six." That is coming straight from the mouth of a new 5 year old and she is already thinking of her next birthday. We miss you and can't wait to see you. Deon says hi too. He misses the little talks they use to have when he dropped Faith off at their preschool. God bless you and hold you close to him.

Deon, Liza, Faith, Hope, and Camden Hammer
The Hammers <deonhammer@bis.midco.net>
Bismarck, ND - Tuesday, January 2, 2007 9:19 PM CST

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Hope you had a wonderful holiday!! Happy New Year!!!


Stacey and Lucas MPS IIIB
http://www.caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Tuesday, January 2, 2007 3:45 PM CST

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Hope you have a Great New Year
Maria Tuckett <maria.tuckett@jetblue.com>
Layton, UT US - Tuesday, January 2, 2007 0:45 AM CST

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, December 31, 2006 10:27 AM CST

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Hey Jenn! I love the new slide show on the front home page! Very nice!!! Happy New Year to you and Jim and the girls. Happy 2007!!!!
Love, Mom
Janelle <janellekunellis@yahoo.com>
- Sunday, December 31, 2006 6:24 AM CST

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The highlight of my year was our trip to WI. What a wonderful time. I just can not tell you how much it meant to both Jeff and I to spend time with all of you. Jennifer your girls are so pretty and sweet. I just smile everytime I think about the trip and the things Ali would come up with. She is just a treasure. Ashley is one special young lady and looked really great in her new glasses. I feel like God gave me a very special gift by making it possible for me to finally meet all of you. The weekend really is one of best memories from 2006 for me. Love to you all. Aunt Cathy.
Cathy Bowe <Kittyblurr@aol.com>
Maple Park, IL US - Friday, December 29, 2006 8:04 PM CST

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I love your picture. I will be thinking about your dad. My dad had cancer a few years ago and is doing just fine now. I hope your dad will come flying right through as well. I am glad the girls had a wonderful Christmas and were good in church. Wish I could say the same for Andrew but he redeemed himself on Christmas, when he was extra good with all the grandparents here. Love, Anne
Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com>
Boonsboro, md USA - Friday, December 29, 2006 12:59 AM CST

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Jennifer and Alli,
It sounds like you all had a wonderful Christmas! I love the reindeer food outside for the reindeer. I think the birds here would eat it before the Santa arrived that night! Our city birds devour everything. I hope you have a blessed New Year. I am so glad to read that Alli is continuing to do well!
Love and prayers,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Friday, December 29, 2006 6:36 AM CST

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Praying for you dad.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Texas - Thursday, December 28, 2006 1:38 PM CST

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Just wanting to wish you a very happy 2007!! Hubby is out of the house for a few minutes LOLOL

Hugs,
Tami ( www.caringbridge.com/ca/slawson )
Tami <TLSlawson@aol.com>
- Wednesday, December 27, 2006 5:19 PM CST

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Merry Christmas my Loved Ones. I am glad that there was plenty of gifts to be opened. I love you All.


Janelle <janellekunellis@yahoo.com>
- Monday, December 25, 2006 9:06 PM CST

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MERRY CHRISTMAS ALLISON ASHLEY AND FAMILY
LOVE
TOSHA AND SYDNEY VANHOOK
TOSHA VANHOOK
- Sunday, December 24, 2006 1:08 PM CST

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Happy Christmas and Happy New Year.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, December 24, 2006 5:24 AM CST

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What a joy it was to have all my girls in one place! Meeting at Jessica's house in WS was a hoot!!! Alli and Ashley were the "hit" of the entire weekend. (yes, we are proud of Jessica too for getting her MA degree!!) Hugs to All....Happy Birthday Jim!!

Love, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, December 23, 2006 9:59 PM CST

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, December 22, 2006 8:29 PM CST

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Just wanting to wish you a Merry Christmas!!!

http://danicaboni.blogspot.com

Kelli and Miss Dani <rdhdtrue@yahoo.com>
- Thursday, December 21, 2006 6:14 PM CST

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kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, December 19, 2006 12:59 AM CST

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happy holiday from the preston family
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, k usa - Sunday, December 17, 2006 3:17 PM CST

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Thank you so much for the Christmas Card ... it is beautiful!!!!
Kelli and Miss Dani <rdhdtrue@yahoo.com>
St. Louis, MO - Monday, December 11, 2006 9:00 PM CST

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The christmas picture looks great in spite of what of what you went through to get it! Have a wonderful Christmas!

Hugs and love,
Patty and

Hugs and love,
Patty and Jesse MPS III

Patty T <wordinedge@aol.com>
Balto, MD USA - Tuesday, November 21, 2006 8:51 AM CST

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Just checking in to see how Allison is doing! Glad to hear things are going well :)
Take care and Happy Thanksgiving!
Sincerely, Lisa (My Little Buddy Danny)


Lisa Endres
Sauk City, WI 53583 - Monday, November 20, 2006 2:25 PM CST

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Hi Babes!! Thinking of you and wishing I could be there for Thanksgiving!!! Hope to see you all at Aunt Jessica's graduation!!?
Love, Nana and John
Janelle and John <janellekunellis@yahoo.com>
- Saturday, November 18, 2006 7:35 PM CST

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Hello
Thank you so much for sharing your site with us! I'm so happy to hear that Allison is doing well. Thanks for the support and wishes you have sent our way as well. I often ask Pam how your and your family are doing, now we have a link that I can follow. Take care!
Christy & Kyle Hirschey and Family <kchirschey@msn.com>
Breckenridge, MN USA - Thursday, November 16, 2006 8:30 PM CST

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Hi, I just had to look at the fun pictures.
Always thinking of you!

Pam
Pam Van Beek <pam.vanbeek@sendit.nodak.edu>
Mandan, ND USA - Wednesday, November 15, 2006 6:31 PM CST

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Hi girls!
I am sooooooo excited to see you two next week! You both look so big in the pumpkin pics!!
Miss you, see you soon!
Aunt Jessica
jessica schumacher <jshu21@msn.com>
- Wednesday, November 15, 2006 9:57 AM CST

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Now, I know two pumpkins when I see them! Great pictures Girls!!! :-) And I did notice that you did not have to have a coat on!! Have a good infusion day. I am thinking of you all. Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, November 12, 2006 7:26 AM CST

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Hi Miss Allison!
I just wanted to let you know that we are thinking of you and checking in to see how you are doing. Glad to hear you are enjoying school so much. You are such a cutie-pie! I hope everything is going well and continues to go well.
~Stacey Teagan Pevler <stacmer14@yahoo.com>
Abilene, TX www.caringbridge.org/visit/teaganpaige - Saturday, November 11, 2006 9:22 AM CST

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no fair they didn't have Stephanie in my size!!! Lazy town rocks!!! Stingy is my favorite!!

I LOVE the new pictures they are awsome I miss you guys I wish you came to the run!
Sammie <Tinkerbell103311@AOL.com>
CA USA - Friday, November 10, 2006 9:45 PM CST

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Love the new pictures!!!


Holly <weddell2031@hotmail.com>
Vallonia, IN - Friday, November 10, 2006 3:33 PM CST

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Everytime I see your picture Alli, it makes me just want to hug you!!!!! I am glad school is fun for you and I just can't wait to hear all about it when I talk to you on the phone. Hugs and Kisses, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, November 9, 2006 8:18 AM CST

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Just stopped by to see the super model's pictures. You are so cute. Hope you had a fun time trick or treating. Hugs from Indiana.
Holly Weddell
Vallonia, IN - Friday, November 3, 2006 10:12 AM CST

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Hi Allison,
I love the pic on the pony!! I hope you got to go out trick or treating! I sure you probably did!
I will be keeping the insurance appeal in prayer. I can't see any reason why she shouldn't be eligible. It just boggles my mind sometimes with the medicaid and MA rules.
Hugs and prayers,
Patty and Jesse MPS III A

Patty T <wordinedge@aol.com>
Balto, MD USA - Thursday, November 2, 2006 7:24 PM CST

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Hi Girls!!!! Hope you had fun last night trick and treating!

Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, November 1, 2006 7:57 PM CST

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HAPPY HALLOWEEN!
LOVE,
TOSHA AND SYDNEY

TOSHA VANHOOK <HURLERMOM101@HOTMAIL.COM>
- Tuesday, October 31, 2006 7:36 PM CST

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, October 31, 2006 2:19 AM CST

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Hi Allison
Hope you have a Happy Halloween! We really missed not seeing you at Tami's Walk/Run this year.
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Monday, October 30, 2006 9:31 PM CST

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Just wanted to say hope you all have a Wonderful Halloween!!! Hope Ally is tolerating her hearing aids better.

http://danicaboni.blogspot.com
Kelli and Miss Dani <rdhdtrue@yahoo.com>
St. Louis, MO - Saturday, October 28, 2006 3:20 PM CDT

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Glad things are going well for you all, it has been a while since I have signed in, but I have been thinking of you. Love the pics of Allison riding the pony!!! Keep fighting for the Medicad, you deserve it and it is worth the fight. We also had to appeal but in the end we won!!! We had our doctor testify for us.
Love,
Nancy and Nolan
Nancy www.caringbridge.org/co/nolanramsey <samdramsey@comcast.net>
Erie, Co - Wednesday, October 25, 2006 3:18 PM CDT

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Good Morning! Nice day here and I am off to scoop some ice cream this morning. Thinking of you all!!!

Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, October 25, 2006 7:19 AM CDT

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Hi All, a cool front moved one down from the North! Please!! It that weather to yourself!! lol I actually wore a long sleeved top today...rare,
Off to the airport to pickup Tina's daughter and son-in-law for a week's visit. Lois comes on Thurs. night. FUN!!
Hugs to All, Love Nana
Janelle <janellekunellis@yahoo.com>
- Monday, October 23, 2006 7:52 PM CDT

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Hi Shower Girl, Tried to call and talk to you but you were in the shower!! Clean is good! LOL I will call again tomorrow. I work all day at the ice cream store but will find the time to call. Hugs, Love Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, October 21, 2006 7:12 PM CDT

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Thinking of you all day today Alli! Miss you and I love you Baby Doll!!!!

Love, Nana
Nana <janellekunellis@yahoo.com>
- Wednesday, October 18, 2006 7:08 PM CDT

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Hi Girl! I am home and missing talking to you! Hugs and Kisses, Love Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, October 17, 2006 8:41 PM CDT

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Hi Baby Doll! I am at Aunt Jessica's and she has been running me into the ground! We have been busy all day and now we are about to end volleyball practice with some yoga. Will call you tonight! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Friday, October 13, 2006 4:04 PM CDT

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Hope the Aids get easier -PINK is good! love Laura and Will!
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, October 12, 2006 3:06 PM CDT

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Hi All, I hope Allison gets use to the hearing aids soon. The new pic is adorable!!! Just wanted to say hi.
Kelli and Miss Dani <rdhdtrue@yahoo.com>
St. Louis, mo - Tuesday, October 10, 2006 6:00 PM CDT

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Hi Sweetheart! I just love that picture on the horse!!! Ashley, you are getting too big too fast! Alli, Alli, Nana says no tears before school Baby Doll. Think of something fun and SMILE while your Mom helps you out in the mornings with those hearing aids.
Hugs and Kisses, Love Nana.
p.s. John is in Seattle holding his new Granddaughter! We all want our turn, right?!!!
Janelle <janellekunellis@yahoo.com>
- Saturday, October 7, 2006 6:02 AM CDT

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Hello Allison, This is your Nana's John. I want you to know that you now have a new cousin. Her name is Teagan. We want to bring her to visit you, so you can hold her, and meet her while she is still a very little baby. I want to see you again soon. How is school? You must have lots to talk about. Are you being nice to your sister? Your Nana and me will come to visit you again soon. We miss you. Bye for now, Love John.
John Kunellis <johnkunellis1@yahoo.com>
Gulfport, MS USA - Friday, October 6, 2006 6:20 PM CDT

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Hi Allison,
This is Sophie's Daddy here. Sophie tolerates her hearing aides quite well but she does let us know when she wants them out. Her aides are placed into the ear, she was offered a headband with built in hearing aides but she won't put up with anything on her head (hats, hairbands etc). I hope you get used to wearing your hearing aides and they don't trouble you too much.
Love

Padraic
P.S. I love your pictures, you are getting more and more cute everyday.
Padraic <padraic@melroseroad.co.uk>
London, - Friday, October 6, 2006 8:02 AM CDT

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Hi gorgeous little Allison, just called by to say HI!

Quite right you needing pink hearing aides - colour co-ordination is a must for groovy young girls! Hope you find some soon.

Much Love,
Ria -Mummy to Jasmin, mps3a caringbridge.org/hi/jasminmay <riaheap@aol.com>
UK - Wednesday, October 4, 2006 10:55 AM CDT

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Hi Girls!! I found two REALLY cute presents for two VERY cute girls yesterday!!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, October 4, 2006 6:32 AM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, September 28, 2006 5:11 PM CDT

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Hey there! Sending a hug to all of you! Alli and Ashley both look so happy on their first day of school. Another milestone to record! I know how fast it all goes by. I've been thinking about you often and a vacation in the mountains sounds fun to me :)
Love, Rachel in Montana
Rachel Cremer <jrcremer@hotspringsmt.net>
- Thursday, September 28, 2006 9:45 AM CDT

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Stoping by to say Hello. Once we went to MN and all of the kids scores were down. The next year all three kids had gone up again. Go figure. I finally learned they're not all they're cracked up to be. We moms know our kids best and we know their abilities better than any standardized test. Minnesota is just a state of mind, the real thing is what you get to hug!
Love you guys,
Amy
Amy Holland <amy.holland@charter.net>
Ft. Worth, TX USA - Wednesday, September 27, 2006 2:41 PM CDT

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Hi All, Just found out I put the wrong number into my new cell phone!! Talk to a really nice lady in bismark today!! Miss you all!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, September 26, 2006 10:32 PM CDT

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Tried to make contact tonight Jenn. Missing you all and thinking of you often!
Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, September 24, 2006 7:25 PM CDT

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Hi All! You do need a vacation Jenn!!!! Being a mother does not come with built in vacations...how I remember! Come to Mississippi to eat ice cream and sit in the sun! Today's high...88...humidity is 82!!!! Sweating! LOL
Off to work today but will call you guys tonight. Hugs and Kiss to the Babes!!
Love You, Mom
Janelle <janellekunellis@yahoo.com>
- Saturday, September 23, 2006 10:03 AM CDT

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Hi, I just wanted to stop by and si HI!
I've been bad signing lately, but I'll try to sign more often now :)

Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Wednesday, September 20, 2006 4:57 AM CDT

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Hi Alli! We thought we'd drop by to see how you are doing. It was so much fun seeing you and your family over the summer in Kentucky. I hope you are enjoying school this year. Chelsey says to tell your sister "hello"!
Love, Kris, Kraiggy and Chels
Kris Klenke <kris@mpssociety.org *****www.caringbridge.org/il/kriag*****>
Worden, IL - Monday, September 18, 2006 12:44 AM CDT

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Hi All, Love You, Nana
Janelle <janellekunellis@yahoo.com>
- Friday, September 15, 2006 9:01 PM CDT

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Tried to call today to say Hello! Talked to Ashley and miss you both. Hug!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, September 10, 2006 7:03 PM CDT

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HELLO BEAUTIFUL PRINCESS,JUST DROPPING IN TO SAY HI!


LOVE,
TOSHA AND SYDNEY VANHOOK

www.caringbridge.org/visit/sydneyvanhook
TOSHA VANHOOK <HURLERMOM101@hotmail.com>
- Saturday, September 9, 2006 6:19 PM CDT

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Hi Ali and Family,
Glad to hear what fun you all had with Nana. Grandma's are great aren't they!! We miss you and we hear all about Miss Ali around here as well!! I love the pic that Jess got of the two of them coloring, it is too cute!!! Well, hope school is going great!! And hope mom is dealing well!!
Love and HUgs all around,
Love, Brenda, JOhn & Zachie
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY usa - Thursday, September 7, 2006 2:33 PM CDT

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When I smile I think of you Alli! I go into my computer to see your smiling face often!! Have a great day at school. You too Ashley!!!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, September 6, 2006 8:12 AM CDT

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Have a good week to my Bismarck girls. Remember grandpa loves you all. Give me a call at the end of the week.

Love Grandpa Chris
Moorhead, mn usa - Monday, September 4, 2006 9:43 PM CDT

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A quick hello and I miss you!!

Love, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, September 4, 2006 4:22 PM CDT

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Hello My Beauties! I am back from the road trip (3800 miles!!) and do I have the cute pictures to prove it! I miss you all and thanks for the wonderful time!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, September 3, 2006 6:21 PM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, August 29, 2006 10:34 AM CDT

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Hi there Allison and Ashley. It is offical now and I am very proud to be your new aunt. Your Nana and John just left here this morning. I am sure your excited that they will be seeing you very soon. Please give each other and you Mom and Dad a big hug from Uncle Jeff and Aunt Cathy. I can't wait until I get to meet you in person some day. Love, Aunt Cathy
Cathy Bowe <kittyblurr@aol.com>
Maple Park, il dekalb - Monday, August 28, 2006 1:22 PM CDT

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One last message before we head North to North Dakota!!! I am so excited!!!! See you all next Weds.!
Love, Nana and John
Janelle <janellekunellis@yahoo.com>
- Thursday, August 24, 2006 8:01 AM CDT

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What a busy summer you have all had. I hope the trip to Minniapolis went well. You were all in our prayers. Abby is so excited to start kindergarten with Allie - it should be fun and exciting for them.
I love the picture of the two of you - it's PRICELESS!
Danielle McPherson <smcpherson@bis.midco.net>
Bismarck, ND Burleigh - Wednesday, August 23, 2006 10:36 PM CDT

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Hi Girls! I went shopping for my babies today!!!! Guess I have presents to wrapped!! Some for Alli and some for Ashley! I can't wait to see you ALL in less than one week. John and I will be there next Weds. Hoo Wee!!
Love, Nana and John
janelle <janellekunellis@yahoo.com>
- Wednesday, August 23, 2006 9:05 PM CDT

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Just dropped by to say hi to the super model. Hope the trip to Minnesota went as well as it could. I know those trips are hard. I really enjoyed seeing Ali at the conference.
Holly Weddell <weddell2031@hotmail.com>
Vallonia, In USA - Wednesday, August 23, 2006 10:58 AM CDT

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Hello My friend!!!
I miss you!!!!! I wish we did not live on opposite sides of the country!!!! We loved MIss Smiley's giggles and hugs and will have to start saving our money to make each and EVERY conference!! I hope that Ali's trip to MN went smoothly and like Nana says, WE know what are kids are doing and they are each uniquely their own!! There is no OTHER PRINCESS like Ali so just rejoice in her!! Tell Ali and Ashley we say "HI" and tell Ali that her boyfriend will be calling VERY soon, he misses her!!!! ;0)
Lots of HUGS, we love you!!
Love, Bren
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY USA - Sunday, August 20, 2006 10:43 AM CDT

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TGIF! Have a wonderful weekend Restemayers!

Janelle <Janellekunellis@yahoo.com>
- Friday, August 18, 2006 8:23 AM CDT

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So gald you are are home and safe. A tough week I know but hold tight....you see Alli every day and see her growth both physically and mentally. Believe in your heart and enjoy each step. I love you Jenn.

Love, Mom
Janelle <janellekunellis@yahoo.com>
- Thursday, August 17, 2006 9:06 PM CDT

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Just stopping by to wish Mom a belated birthday! Hope all goes well with your appts. So sorry we didn't get to KY..sounds like everyone had a great time! With the flight being delayed 3 x on Friday evening, I took it as a sign to stay home since it was for only one day anyway.
Hugs to you all,
Patty and Jesse MPS III A

Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Thursday, August 17, 2006 5:29 PM CDT

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HAPPY BIRTHDAY JENN!!!!!!

Love, Mom
Janelle <janellekunellis@yahoo.com>
- Wednesday, August 16, 2006 8:44 AM CDT

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One more day till your brithday Jenn! I sat in bed this morning and just couldn't believe how time flies!!! Hope your day went well and thank you + Jess so much for visiting our friend JuAnn Reichart who is in the hospital in St. Paul.
Love, Mom
Hi Girls!!!!!
Janelle <janellekunellis@yahoo.com>
- Tuesday, August 15, 2006 12:24 AM CDT

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Best wishes for your trip to Mpls and prayers going out for Alli to have a successful and SAFE week there! Oh, and Happy Birthday, Jennifer!
Lisa Post <ltjpost@yahoo.com>
- Sunday, August 13, 2006 6:35 PM CDT

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Thinking of you all as you travel to Minneapolis! I have you tight in my heart Alli! Happy Birthday Jenn....my love, my first baby! You are so special so hold tight onto that precious one. Have a great birthday with your girls and Jim!! Love You, Mom
Janelle <janellekunellis@yahoo.com>
- Friday, August 11, 2006 9:34 PM CDT

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Good luck in Mpls. It will go fine. I am glad you had a good time in KY. We are always thinking of you all.
Deb www.caringbridge.com/aj/toivola <dltoivola@yahoo.com>
gilbert, mn - Friday, August 11, 2006 12:43 AM CDT

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HI GIRLS, JUST DROPPING IN TO SAY HI!

HOPE EVERYTHING IS GOING WELL!!

LOVE,
TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <HURLERMOM101@hotmail.com>
BLOOMINGTON, ILL - Wednesday, August 9, 2006 7:28 PM CDT

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just stop by to say hello hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, August 8, 2006 11:34 PM CDT

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Happy Sunday!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, August 6, 2006 10:15 AM CDT

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Hi girls, Just checking to see how you are!! Love you All, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, August 3, 2006 10:17 PM CDT

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Nice pictures Jenn and Alli! Now there is a Mother and her daughter!! Glad the conference went well and all had fun. TOY! Hugs and Kisses!!
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, August 3, 2006 8:38 AM CDT

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Happy Belated Birthday Ashley. I hope you had a fantastic time and you got lots of presents.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Monday, July 31, 2006 11:06 AM CDT

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Hi guys! It was SOOOO nice meeting you at the conference!!!
Miss Alli is a doll baby!! but I already knew that by the pictures! It was just so nice to finally meet you guys in person! Her personality is so adorable!!
I hope that she continues to do well!!
Hope to see you guys again soon!!
Jenn Deskins <tylersmommy11304@yahoo.com>
- Monday, July 31, 2006 10:57 AM CDT

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Hi Miss Smiley!!! It was great meeting you here in Kentucky!! I cannot wait to see you again.

Kisses and hugs
Paulina
ANDREW's WORLD
Paulina and Andrew Jump MPS III B <caljump@msn.com>
Sparta, Ky USA - Sunday, July 30, 2006 7:08 PM CDT

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I talked to Alli last night and she told me she was "SO excited" to be going to the MPS national conference! What a Doll...she will have everyone in love with her as she meets and greets all!! Safe travels my Babes! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, July 27, 2006 8:33 PM CDT

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Have a wonderful trip Alli! Fun for everyone and travel safe! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, July 26, 2006 2:45 PM CDT

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Happy Belated Birthday, Ashley!
Have a great time at the MPS Conference! Hoping Alli's ears comply with your travel plans! Love the pool pics! Isn't summer great girls?
Lisa Post <LTJPOST@cox.net>
Trumbull, CT - Sunday, July 23, 2006 10:12 PM CDT

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Hello,

How are you all doing these day? I got my Expressions Of Hope book in the mail today and saw Alli's picture, CUTE!! Have a great weekend!



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, July 23, 2006 0:51 AM CDT

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Looks like summer fun at your house. Happy belated b-day Ashley! How are those ears Alli? We are praying for them to unclog before your big trip. Sure wish we could all cool off together sometime. We'll be travelling through ND in August. I'll be in touch!
Love, the Cremers
Rachel Cremer <jrcremer@hotspringsmt.net>
Hot Springs, MT US - Friday, July 21, 2006 4:53 PM CDT

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Ashley, I love your suit!!!! Too cute! Alli...you are too!!! Glad your birthday party went well and you had a ball!! Hugs to All, Love, Nana
Janelle <janellekunellis@yahoo.com>
- Friday, July 21, 2006 4:26 PM CDT

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HAPPY BIRTHDAY ASHLEY!!!

THE POOL LOOKS LIKE FUN!!!

HAVE A SAFE AND FUN TRIP TO THE CONFRENCE!!

LOVE,
TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <HURLERMOM101@HOTMAIL.COM>
- Wednesday, July 19, 2006 3:20 PM CDT

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Hi Alli! Sending you all my love and kisses!!!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, July 16, 2006 8:01 PM CDT

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Just stopped in to say Hello! I hope you having a fun summer!
Hugs and prayers!
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Sunday, July 16, 2006 8:13 AM CDT

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Busy, Busy! I just know that you are keeping your Mom hopping. Hope you had a fun day today!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, July 12, 2006 6:25 PM CDT

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My Little Honey Bunny! I sure miss you today!!! I talked to your sister to tell here I sent her birthday gift today BUT I did not get to talk to you. I guess you will have to learn how to type....oh...I guess you have to go to school first!!! You are such a smart cookie that you'll be emailing me in no time! Missing you lots Alli. Love You, Nana
Nana <janellekunellis@yahoo.com>
- Tuesday, July 11, 2006 5:56 PM CDT

---

Hi My Little Goof-Ball!!! I miss talking to you on the phone. Let's get those ears in gear so we can do some girl talk! I love you Alli.
Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, July 9, 2006 9:51 AM CDT

---

Hi Baby Dolls, Hope you are having a good day! Love You, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, July 6, 2006 11:41 AM CDT

---

HI GIRLS, Thinking of you today...Ashley...I will be posting my presents to you very soon! I heard Aunt Jessica already sent you your gifts! Lucky Girl!! Love You Both, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, July 5, 2006 9:08 PM CDT

---

Hope you're having a wonderful 4th of July!
Hugs,
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, ca - Tuesday, July 4, 2006 10:02 PM CDT

---

HAPPY 4TH OF JULY!!!!! LOVE, NANA
janelle <janellekunellis@yahoo.com>
- Tuesday, July 4, 2006 7:36 PM CDT

---

HAPPY 4th of JULY!!!!



Jenn Deskins <y@ya.com>
- Tuesday, July 4, 2006 6:50 PM CDT

---

Sammie! <Tinkerbell103311@AOL.com>
CA BIG U.S. OF .A - Tuesday, July 4, 2006 6:06 PM CDT

---

HUgs for you all,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Monday, July 3, 2006 6:25 PM CDT

---

Hi Ali!!!!!
Just checking in with my mom- I like your picture with your Daddy, my mom says it is very sweet and something she would like to paint. I'm sorry that you have had trouble with your sinuses, I hope you feel better soon!
Have a great summer! I wish we could have a play date sometime! Love,
Caroline xxxoooxxxooo
Caroline Downham <momtoty@yahoo.com>
Houston, TX - Sunday, July 2, 2006 11:22 PM CDT

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Hello BabyDoll! Sending you lots of kisses!!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, July 1, 2006 10:29 PM CDT

---

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, July 1, 2006 5:59 PM CDT

---

Hosted by Sparkle Tags
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, July 1, 2006 5:23 AM CDT

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HELLO ALLISON YOUR NANA HAS TOLD ME SO MUCH ABOUT YOU GUYS I HOPE TO MEET YOU ALL ONE DAY !!! HAVE A GREAT SUMMER!!!
THERESA BOURQUE <MOTHEROF2INGPT@AOL.COM>
GULFPORT, MS HARRISON - Thursday, June 29, 2006 9:54 PM CDT

---

Alli May, I hope your are hearing better tonight. I am talking to you from here....hear me? Close your eyes and I am there! Love You, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, June 28, 2006 9:02 PM CDT

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Good Morning Alli and Ashley! Have a good ole summer day!! Love You, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, June 27, 2006 7:08 AM CDT

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Hi Girls! thinking of you both today!!! Hugs And Kisses, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, June 24, 2006 10:06 PM CDT

---

We got the painted picture of Alli. I just wanted to let you know that her smile brings such joy into my heart. She is such a blessing. Love to all. Aunt Cathy
Cathy <kittyblurr@aol.com>
Maple Park, IL dekalb - Friday, June 23, 2006 8:41 PM CDT

---

Hi All, Sending you my best thoughts this early morning! I sent out a bunch of emails with Alli's painted picture. It is so very special!! TOY! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, June 23, 2006 3:28 AM CDT

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OMG! I can't wait for Ali and Zachie to meet!!!!!
I just know sparks are gonna fly!!!!!!!!!!
I hope you all had a nice Father's Day!
Just wanted to let you know I was thinking about you all today!!!
Love Brenda!

Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY USA - Monday, June 19, 2006 2:55 PM CDT

---

I just wanted to stop by and let you guys know I'm thinking of you!! Glad to hear things are going good for Allison! she is such a little cutie pie! I love seeing pictures of her with that adorable smile on her face!! It always brightens my day! :)
Hope you guys are having a wonderful weekend!

www.caringbridge.org/ky/tylerdeskins


Jennifer Deskins <tylersmommy11304@yahoo.com>
- Sunday, June 18, 2006 2:40 AM CDT

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Hi Babes, Thinking of you today and everyday. Love, Nana
(p.s. Ashley, I have your birthday gift wrapped and ready to send you!!)
Janelle <janellekunellis@yahoo.com>
- Saturday, June 17, 2006 8:25 PM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, June 17, 2006 5:50 PM CDT

---

Perfect Jenn. What a lovely picture! Happy Father's Day Jim! You have a beautiful wife and are raising the best daughters ever!!!!
Love To You, Janelle
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, June 16, 2006 6:03 PM CDT

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I love Alli's picture with her Daddy this is precious and so beautiful! Only another month until we get to meet, I am
so excited!!! Will check back soon - Love and Hugs, Erica MPS I www.caringbridge.org/wi/ericathiel
Erica Thiel <scheiecat@yahoo.com>
Beaver Dam, WI - Wednesday, June 14, 2006 5:11 PM CDT

---

Hi Alli!
I miss you! I hope to come and see you and your sister this summer! It looks like you are gettting really big, you're almost ready for kindergarted! WOW!
I love you!
Aunt Jessica <jshu21@msn.com>
Osseo, WI 54758 - Tuesday, June 13, 2006 2:37 PM CDT

---

Hi Jen and Alli,
I see why you love the pic of Alli and dad, it is a great picture!! The sinus's this year I think have been giving almost everyone problems unfotunately. I know so many with these issues. We have them mildly, but it is still a constant battle keeping them from getting full blown. So far no antibiotics needed here. Just X-Clear for the sinus's and ocassional dose of B & T syrup for that nasty nasal drip.
I hope she stays well and gets over the sinus mess quickly.

Have a wonderful Father's Day weekend!
Hugs and love,
Patty and Jesse MPS IIIA

Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Monday, June 12, 2006 8:33 AM CDT

---

Hi Girls! Thinking of you today!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Friday, June 9, 2006 9:22 PM CDT

---

Alli and Jenn, My heart swells with pride as I read all the kind, loving words that your friends write! I want to shout to the world that "that's my Baby"! meaning of course... you first Jenn... and Alli is right there too. Ashley is my #1 granddaughter but those babies...always seem to make a special place in one's heart! I have been birthday shopping for my first GrandBaby... Ashley! Her birthday is coming up and presents will be sent!!
Hugs and Kisses, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, June 6, 2006 6:31 PM CDT

---

Hey Sweet girl...much love to you from NC! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, June 6, 2006 8:32 AM CDT

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We are neighbors to Allie and have been blessed with spending some days with her. Abby (5) and Ashlee (3) love Allie and look for her outside on a daily basis. We feel fortunate that the girls have found such a special friend!

Danielle
Danielle McPherson, Abby and Ashlee <smcpherson@bis.midco.net>
Bismarck, ND usa - Sunday, June 4, 2006 5:35 PM CDT

---

Have a great Sunday! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, June 4, 2006 7:11 AM CDT

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Hi Beautiful! Hoping you are having fun each day this summer!! I will call over the weekend. Love, Nana
Janelle <janellekunellis@yahoo.com>
- Friday, June 2, 2006 8:49 PM CDT

---

Allison is such a doll. The slideshow was awesome.
Holly <weddell2031@hotmail.com>
Vallonia, IN USA - Thursday, June 1, 2006 7:37 AM CDT

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Hi All, Hope you are having a fun day! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, May 29, 2006 8:53 AM CDT

---

I LOVE the cover photo...Allison is beautiful! Much love to y'all. kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Sunday, May 28, 2006 6:36 PM CDT

---

Hey Allison!
Congratulations on your 3 years of ERT!!!! Hopefully the FDA will approve Scotty's soon! Love the new picture of you with the flower. You're such a cutie!
Hugs,
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, CA - Sunday, May 28, 2006 0:44 AM CDT

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Hi Babes, Have a fun weekend! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, May 27, 2006 10:02 PM CDT

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Congratulations Allie!!

Maybe you can celebrate even more on this Holiday weekend! I hope you have good Memorial Day!


Jesse MPS IIIA


Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Friday, May 26, 2006 3:15 PM CDT

---

Alli, I just changed my computer picture from you at Ashley's basketball game to you with the flower! Have a wonderful weekend and whee! school is out and let the summer begin! I'll be scooping ice cream all weekend. Temps here near 90!!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Friday, May 26, 2006 10:04 AM CDT

---

Wow 3 years of ERT!!! Amazing! That certainly is something to celebrate! Hope Ashley's arm heals well with NO RE-BREAKS!!!
Lisa Post <ltjpost@yahoo.com (new email address)>
Trumbull, CT - Thursday, May 25, 2006 8:44 PM CDT

---

I sent the pictures to all on my email list....I am so proud of you Jenn and Alli...I adore you!!!! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, May 25, 2006 6:50 PM CDT

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What a beauty! Alli!!!! Your hair is so long!!!! Thanks Jenn, I got the pictures on my email so now I can save them on my computer.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, May 23, 2006 6:33 PM CDT

---

Hello!! Hi Ms. Allison, We love your website!!
Jennifer - thank you for checking in on Lucas and
for the welcome into the MPS forum. I hope to talk to
you soon!!

Stacey and Lucas (MPSIIIB)
www.caringbridge.org/visit/hopeforlucas
Stacey Montgomery <lewnstacey@aol.com>
Cedar Rapids, IA - Tuesday, May 23, 2006 3:16 PM CDT

---

All sounds right with the Restemayer world! Kids are in their last week of school and then let the summer begin! Off today to work but wanted to say hi before I go. Have a great day everyone! Love, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, May 22, 2006 9:25 AM CDT

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Hi All, Will call later today. Nice here...in the 90's!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, May 21, 2006 2:29 PM CDT

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Good Morning Alli and Ashley! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, May 18, 2006 8:03 AM CDT

---

What a milestone! Alli is a Doll and her messages to me on my cell are saved and reheard time and again! Congrats to you all!!!! Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, May 16, 2006 9:34 PM CDT

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Hey Restmeyer Family! I hope you had a great Mother's Day. Sorry to hear Miss Ashley crashed on her cool skates, but I LUV that green cast. So glad to her Miss Alison is doing great, three years later! Much love and thoughts to y'all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, May 16, 2006 9:27 AM CDT

---

Hi Babe Doll! I am so happy Lois stopped in yesterday to give you a hug and a kiss from me!!! She told me that you felt sooo good! Have a great day. You're school program looked fun!! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, May 16, 2006 7:30 AM CDT

---

Thank you soooo much Jennifer! Happy Mother's Day!
Cathy Peters <jacon@shaw.ca www.caringbridge.org/canada/isobel>
- Sunday, May 14, 2006 8:53 PM CDT

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HAPPY MOTHER'S DAY!!!

Hope you have a wonderful day!

Jenn Deskins
- Sunday, May 14, 2006 1:54 PM CDT

---

Hi Jenn & Ally
Hope you have a wonderful day tomorrow celebrating Mother's Day!
Hugs,
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, CA - Saturday, May 13, 2006 8:51 PM CDT

---

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, May 13, 2006 11:49 AM CDT

---

Lots of hugs!!
Patty and Jesse MPS IIIA


Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Saturday, May 13, 2006 10:42 AM CDT

---

I just wanted to stop by and say hello. May you have a great Mother's Day weekend.
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, Ut US - Friday, May 12, 2006 2:38 AM CDT

---

Just wanted to stop by and say HI! I love the new pictures!!! Allison is such a cutie pie!! Looks like she had a great time with her musical!!!!

www.carinbridge.org/ky/tylerdeskins

Jenn Deskins <tylersmommy11304@yahoo.com>
- Thursday, May 11, 2006 1:57 PM CDT

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TO A SUPER HURLER MOM:
HAPPY MOTHER'S DAY!!!
LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <HURLERMOM101@HOTMAIL.COM>
- Thursday, May 11, 2006 11:29 AM CDT

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Hi All, Have a good day today and I will call you all later in the day.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, May 7, 2006 7:24 AM CDT

---

Hey Girls,
Hope you all have had a good and QUIET week, enjoy the weekend!!! :0)
Love, The Haggett Family
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse/Upstate, ny usa - Saturday, May 6, 2006 4:21 PM CDT

---

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, May 5, 2006 10:09 AM CDT

---

Hi Baby Doll! Sending you lots of hugs and kisses today Alli!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, May 4, 2006 7:33 AM CDT

---

Hi Miss Allison and family

I want to thank your mom, Jennifer, for visiting Olivia's web page and for the inspiring messages posted there and to me personally! I appreciate the support. Alli - you look pretty in pink - it suits your blond hair and bright eyes!

Tracy
Tracy Riley <triley@inspire.net.nz>
Palmerston North, N/A New Zealand - Wednesday, May 3, 2006 8:18 PM CDT

---

Hello,
I was checking on Miss Alli. WOW three years.. it sure doesn't seen that long! So sorry to hear about Ashleys arm. :-( I hope she is doing better by now.
Hugs and Kisses,
Patty and Jesse
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Wednesday, May 3, 2006 7:05 PM CDT

---

Just wanted to stop in and say HI!! and let you guys know I'm thinking of you!!! Hope you have a wonderful week!!

www.caringbridge.org/ky/tylerdeskins

Jenn Deskins <tylersmommy11304@yahoo.com>
- Tuesday, May 2, 2006 3:09 PM CDT

---

How did I miss Ashley breaking her arm??!!!!
I hope she is feeling a lot better by now and getting as much sympathy as possible!!! ;0))) You hopefully break your arm ONLY once in your life!! LOL Really, I hope she is feeling much better and it is healing quickly!! XXX's & OOO's!! Love, Brenda & Zachie!!
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse/Upstate, New York usa - Monday, May 1, 2006 7:25 PM CDT

---

It was so good to see all of you today. Allison - Ellie loves her bracelet. She won't take it off even to go to bed! I hope medicine day went well. We think of you guys often.... Be sure to keep in touch and let us know when you visit the Twin Cities.
Kara Johnson <kjohnson@medicine.nodak.edu>
Fargo, ND USA - Sunday, April 30, 2006 10:56 PM CDT

---

My Girls! I send you my Love today. Hugs for your arm Ashley and Alli....you be the big sister and help Ashley out!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, April 30, 2006 9:01 PM CDT

---

I hope your arm is feeling better! Hopefully you will get that cast off soon and be back to running and skating!



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, April 28, 2006 7:35 PM CDT

---

HI GIRL'S,SOUNDS LIKE SHE GUYS ARE HAVING A ROUGH TIME.I HOPE THE SINUS INFECTIONS GO AWAY AND ASHLEY'S RIST HEALS NICELY.WE LOVE YOU GUYS AND ARE THINKING OF YOU EVERYDAY AND ALWAYS.LOVE YOU ALL,TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <HURLERMOM101@HOTMAIL.COM>
- Thursday, April 27, 2006 11:54 PM CDT

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I hope you are feeling better soon Ashley I bet Miss Allie is playing Big Sis' now and doing lots to be helpful! I hope Alli and Ashley are feeling better soon, those SInus infections are a real bug no doubt! Feel Better Soon! Hope to see you all in KY in July, Love Erica
Erica Thiel www.caringbridge.org/wi/ericathiel <scheiecat@yahoo.com>
Beaver Dam , WI - Wednesday, April 26, 2006 3:28 PM CDT

---

Hey there you guys! Spring has sprung and so have the outdoor injuries. Heal up fast Ashley! I love lime green:)! I hope everyone is well and doing better with the sinus stuff. Congratulation on your 3 year count down! It's wonderful to see Allison growing into such a fun, bright and loving girl.
Lots of love! Rachel
Rachel Cremer <jrcremer@hotspringsmt.net>
- Wednesday, April 26, 2006 1:50 PM CDT

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Hi All, Off to Salt Lake City for the rest of the week. Take care and I'll call to see on the broken arm is!!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, April 25, 2006 8:10 PM CDT

---

THanks Jennifer!!! You are such a wonderful friend!
Give those two beautiful girls big hugs from all of us over here! Thanks again so very much!! :0))))
Love, Bren
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse/Upstate, NY USA - Monday, April 24, 2006 9:11 AM CDT

---

Now is the time for Alli to be the BIG sister! Ashley broke her wrist yesterday and now Alli has to "help out". Be kind my love.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, April 23, 2006 4:37 PM CDT

---

Hello!

I hope you are all having a wonderful weekend!!!!



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 22, 2006 4:12 PM CDT

---

Have a great Sat. Girls!
XX,OO Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, April 22, 2006 11:41 AM CDT

---

Happy Spring! I love the new pictures! Sending love and hugs your way,
Becky, Jacob, Brenden, and Cassie <omeara42@hotmail.com>
moorhead , mn usa - Friday, April 21, 2006 10:05 PM CDT

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I see those smiling faces and I just want to hug and kiss you both!!!! I miss you.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, April 20, 2006 8:07 PM CDT

---

HAPPY EASTER SMILEY GIRLS!!!!!
I love your Pic!!! I hope your sweeties have a very "Hoppy" day today!!!! Prayers to Mom & Dad as well!!
Love,
The Haggett's, John, Brenda & Zachie
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, New York usa - Sunday, April 16, 2006 10:17 AM CDT

---

Image code by MyNiceSpace.com

www.caringbridge.org/visit/littleangel
Anita <lpn_06@yahoo.com>
- Saturday, April 15, 2006 11:28 PM CDT

---

HAPPY EASTER GIRLS!!LOVE YOU ALL!!
TOSHA AND SYDNEY,
TOSHA VANHOOK <HURLERMOM101@HOTMAIL.COM>
- Saturday, April 15, 2006 9:42 PM CDT

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 15, 2006 2:54 PM CDT

---

Happy Easter!!

ANDREW'S WORLD
Paulina and Andrew Jump MPS III B <caljump@msn.com >
SPARTA, KY USA - Saturday, April 15, 2006 9:05 AM CDT

---

Happy Easter to my Babies! Hugs and Kisses, Love Nana
Janelle <janellekunellis@yahoo.com>
- Friday, April 14, 2006 9:04 PM CDT

---

Happy Easter.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Friday, April 14, 2006 9:35 AM CDT

---

I'm glad things are going well for Allison! I love the new pictures, she is such a little cutie!
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Friday, April 14, 2006 0:41 AM CDT

---

Just checking in to take another look at those beautiful girls! Have a great day!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, April 13, 2006 6:53 AM CDT

---

Anita
- Wednesday, April 12, 2006 10:34 PM CDT

---

Dropping in to say Hi and see how yo guys are doing!!??
I just LOVE the new pictures!!
Take care. Praying for you always
Anita, Jason, AUstin, and ^^Adriana^^
www.caringbridge.org/visit/littleangel
Anita
- Wednesday, April 12, 2006 10:28 PM CDT

---

hi guys
just wanted to stop by and wish you guys a happy easter.hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Wednesday, April 12, 2006 10:19 PM CDT

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My Granddaughters are BEAUTIFUL!!!!! (brag, brag!!) What great pictures Jenn! They are both living Dolls!!!!
Love and Hugs to All, Nana
janelle <janellekunellis@yahoo.com>
- Wednesday, April 12, 2006 5:31 PM CDT

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Love, Kim & Scotty (MPS II) www.caringbridge.org/ca/friends <cottons@earthlink.net>
Modesto, ca - Wednesday, April 12, 2006 0:24 AM CDT

---

Just stopping in to say Hi!! I am glad to hear most of the school's issue with safety are being resolved. Give Miss Allie some hugs from us.
Love,
Patty and Jesse

Jesse's Ride to Wipe Out MPS!
Patty Taomrino <wordinedge@aol.com>
Balto, MD USA - Tuesday, April 11, 2006 6:17 AM CDT

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 8, 2006 1:40 AM CDT

---

TOY! Love, Nana
Janelle <janellekuneliis@yahoo.com>
- Thursday, April 6, 2006 8:24 AM CDT

---

Hello to my Baby Dolls this morning.

Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, April 5, 2006 10:26 AM CDT

---

Loving you all and missing you tonight.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, April 4, 2006 10:26 PM CDT

---

Hi Allie...My name is Heidi! I am one of your Auntie Jessica's good friends. I am orginally from Minot & it sure looks like you had fun at the new water park in the mall! I'll have to try it out when I get back to Minot. I'll continue to check your site. Have fun in school!
Heidi Selch <hjbrenden@hotmail.com>
Morriston, Swansea Wales - Tuesday, April 4, 2006 4:50 AM CDT

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My Love, Come and be cute at my house! I miss you and I just love the new pictures!!!! Allison and Ashley, you are such dears!!! Love You All, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, April 3, 2006 8:49 PM CDT

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Dear sweet Allison.... we need to meet soon! Your mom has told me so much about you and from what everyone has written, you are a GEM!!! What a beauty- I love the pictures of you at in the pool! With Great Love and Prayers, Michelle!!!!
Michelle Schumacher <mschumacher01@msn.com>
Scottsdale, AZ USA - Monday, April 3, 2006 1:58 AM CDT

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Hosted by Sparkle TagsHAVE A GREAT WEEK ALI HUGS AND KISSES KATHY AND KATILYNN
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
KY USA - Sunday, April 2, 2006 5:03 PM CDT

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Allison is looking as cute as ever, I LOVE all of the new pictures. Looks like she had a blast in the water. I also wanted to thank you for the picture and pocket angel that you sent me, sorry I have not had a chance to thank you before now. Always praying for you guys, take care.
www.caringbridge.org/visit/littleangel
Anita, Austin, and ^^Adriana^^
Anita Stanforth <lpn_06@yahoo.com>
- Sunday, April 2, 2006 0:56 AM CST

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Hello!
I have followed Miss Allison for a couple of years now. I used to nanny for a little boy named Freeman who had Hunter's Syndrome. He passed away a couple of years ago. I learned so much from that little boy and I loved him soooooo much! I am also the adoptive parent of a child with a dual diagnosis of mental illness and developmental disablities. I make a form up every year that just says who he is, what his strengths and weaknesses are, and general information. Sometimes people look at me like I'm nuts, but I always just smile and tell them to trust me, they will find that sheet very helpful.

Your daughter is such a cutie! I hope her boo-boo's are healing well. I always keep my eyes peeled for you when I'm in Bismarck~my husband's family is from there. :)

Amy
www.caringbridge.org/visit/gerryheidt
Amy <suzyhsmows@aol.com>
Billings, MT USA - Saturday, April 1, 2006 11:40 PM CST

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I love the new pictures! Looks like the girls had LOTS of fun in the pool!!! What cuties! Hope you had a great weekend!
Jenn Deskins <tylersmommy11304@yahoo.com>
- Saturday, April 1, 2006 11:19 PM CST

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 1, 2006 10:08 AM CST

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Awesome slideshow! Congrats on 2 years of ERT! God bless you!
Lisa Post <LMPOST@cox.net>
- Friday, March 31, 2006 8:16 PM CST

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I ABSOLUTELY LOVE THE NEW PICTURES.ALLISON IS SUCH A DOLL.WE LOVE YOU GIRLY AND HOPE YOUR BUMBS FEEL BETTER.
LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <HURLERMOM101@HOTMAIL.COM>
- Thursday, March 30, 2006 2:01 PM CST

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Just checking in. Love to All!! Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, March 29, 2006 6:07 AM CST

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Glad to hear from you and Allison. So sorry to hear that she hurt herself falling. I'm really glad that she's o.k.
God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Tuesday, March 28, 2006 9:41 PM CST

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Well, it's official, I think Jenny now has competition from Miss Smiley!!The new picture of Alli and her guitar is Zachie's kind of girl!!!!! He likes the pic, ALOT!!!! You better be planning on the conference my friend!!! I swear I am not avoiding the Forum, do you see how often I update Zachie's page, NOT OFTEN!! I'm having a hard time getting time lately!! Zachie also has taken over the one and only computer of the house so we are fighting for turns now! :0) There's just been a lot going on here with the school business and the back stuff, but I have a new Dr. appt. tomorrow so hopefully I'll have a better plan soon. I hope Alli's bumps are better now and she is happy as a clam again on the bus and at school!! Tell her she has gained a new boyfriend since taking up the guitar!!!
Hope we can catch up soon, sorry for being so out of touch lately!! Love to you all.
Bren & Zachie
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY USA - Tuesday, March 28, 2006 6:45 PM CST

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What a beautiful summy day here in the South today. Hope the sun is melting that snow so Spring can pop out there! Have a fun Sunday and hope all is well. Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, March 26, 2006 11:06 AM CST

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Just stopping in to say HI! I'm sorry to hear that Alli has been sick! and the falls...Oh my gosh!! I'm glad you got all the paperwork settled though...hopefully everyone at her school will be more attentive now! I love the new pic on her page!! How cute!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Saturday, March 25, 2006 4:29 PM CST

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Hi Girls, Have a great weekend. I am off to shop with my Mom. Cold here today....I saw frost on my grass this morning!!!!
Hugs, and Kisses, Nana
Janelle <janellekunellis@yahoo.com>
- Saturday, March 25, 2006 8:55 AM CST

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Hi Alli! Hugs and Kisses to you!!!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Friday, March 24, 2006 8:21 AM CST

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Hey there from Montana. So sorry to hear abour your falls. We are praying for good traction this week and a good recovery. It probably scared mom more than Alli :) I love the superstar pose! You are quite a girl!
Love, Rachel
Rachel Cremer <jrcremer@hotspringsmt.net>
- Wednesday, March 22, 2006 11:26 AM CST

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Good Morning Beautiful! I check your newest picture out so see if I can hear the "sound"! lol I bet your Mom and Dad just love those tunes too!!!? Have a great day Baby Doll.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, March 22, 2006 9:03 AM CST

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I am sitting here full of tears and joy after viewing that slide show...what a treasure!!! It was just beautiful, like your girls. Glad Miss Allison is doing better. Take care and much love to y'all - kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Tuesday, March 21, 2006 11:05 AM CST

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Whew! that was quite the report on the last few weeks! Baby Doll, stay on your feet!! Love You!!! Nana
Janelle <janellekunellis@yahoo.com>
- Tuesday, March 21, 2006 10:15 AM CST

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HI Smiley sweetheart,
I hope there have been no more bumps and we're all as happy as can be!! I was just thinking of you Jenn and wanted you to know!! I hope things have straightened out and if they haven't, then I pray they do!!`
Give the girls hugs from us!!
The Haggett's
www.caringbridge.org/visit/zachie
Brenda Haggett mom to Zach ML II/III <jhrufus@aol.com>
Syracuse, NY usa - Tuesday, March 21, 2006 9:34 AM CST

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Hi Girls, I talked to you both is morning but just stopping on by to say one last "HI"! Love You, Nana
janelle <janellekunellis@yahoo.com>
- Sunday, March 19, 2006 5:20 PM CST

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Hosted by Sparkle Tags just drop by to say hi and hugs and kisses kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, March 19, 2006 1:43 PM CST

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Ashley, You are BEST BIG SISTER....well your Mom was one heck of a good big sister as well. She taught you well!
Love You, Nana
janelle <janellekunellis@yahoo.com>
- Friday, March 17, 2006 9:35 PM CST

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Love, Kim & Scotty
www.caringbridge.org/ca/friends
Kim <cottons@earthlink.net>
Modesto, CA - Friday, March 17, 2006 4:02 PM CST

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hi alli i luv you you're the best little sister
Ashley Restemayer <ashley8@bis.net>
bismarck, ND U.S.A - Thursday, March 16, 2006 5:51 PM CST

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PRAYER BEARS WEBSITE

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, March 16, 2006 8:54 AM CST

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Alli, I just had to see your smile one more time today. I love you girlfriend!
Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, March 15, 2006 3:41 PM CST

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Hi Bumpy Girl! Have a wonderful day at school today. My Mom (your Mom's Nana) is coming over for bridge and lunch with two other women this morning and then John and I are going to the grocery store in LA. Have fun today!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, March 15, 2006 7:55 AM CST

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Take a deep breath Jenn...remember that teachers are there to help too! Try to come up with a plan together...and it will work out. I love you Daughter.
janelle <janellekuenllis@yahoo.com>
- Tuesday, March 14, 2006 8:11 PM CST

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Alli, Alli, Ashley Babe! I talk about you each day I work at the Ice Cream Corner. I tell people about you both all day long...but my heart is missing you!!!!!!!!!!!!!
Love, Nana
janelle <janellekunellis@yahoo.com>
- Monday, March 13, 2006 10:39 PM CST

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Hi Baby Doll, Hope your tummy is feeling better!
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Sunday, March 12, 2006 11:49 AM CST

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Hello!

I just wanted to let you know that I was thinking about you. I hope you are having a wonderful weekend!



Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, March 12, 2006 1:54 AM CST

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The wind here today is howling about 40 mph. Remeinds me of Nd which reminds me of how much I miss all of you!! Have a great day. Love, Nana
Janelle <janellekunellis@yahoo.com>
- Thursday, March 9, 2006 1:08 PM CST

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Girls, I watched American Idol tonight and was thinking of you all watching in ND. I miss you.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Wednesday, March 8, 2006 8:37 PM CST

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Hi my Darlings, Hope your start to the week was a good one! Hugs and Kisses, Love, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, March 6, 2006 10:09 PM CST

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Just stopping by to see how Ms. Alli is doing!!! Sounds like she is doing well!
Hugs to you all!
Patty and Jesse
Jesse's Ride to Wipe Out MPS!
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Monday, March 6, 2006 5:56 PM CST

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Hi Jenn and Jim, and Granddaughters! Have a restful Sunday.
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, March 5, 2006 8:45 AM CST

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, March 4, 2006 10:49 AM CST

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Hi All, I played bridge yesterday and a man from my Church still had Alli's ribbon on. I overheard someone ask about it and he told her. Cute!!!
Hugs, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, March 4, 2006 9:57 AM CST

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Hi All, Just checking in for the night. I always love to see my girls before I call it a night. I love you and Miss You!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, March 3, 2006 7:59 PM CST

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Hi Alli, I just talked to Lois and I want you to know that her sister Bonnie wore your ribbon all day Sat. even though she was very sick all day long. Lois said she insisted on having it on even in bed!! One more person trying to help!!Have a great day.
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, March 2, 2006 9:06 AM CST

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Stuff for your blog!

just wanted to stop by and say hello and give hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, February 27, 2006 2:16 PM CST

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Hi All, I watched the video again. Had not looked at it for awhile and wow!!!! When I think what that infusion each week does for Alli I do believe in miracles!! Have a great week all.
Love, Nana
Janelle <janellekunellis@yahoo.com>
- Monday, February 27, 2006 9:56 AM CST

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Hi Jenn and Allison
Glad to hear you are all getting over that nasty stomach bug..we had it at our house back in January..it was awful..luckily Emma didn't get it!!
Hope things continue to go great!!
As always you are in our thoughts and prayers!!
Take care~~ Becky and Emma
www.caringbridge.org/canada/prettygirl
The Hardman's <bbjhardman@sympatico.ca>
ONT Canada - Sunday, February 26, 2006 9:05 AM CST

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Hey Baby Doll! I am sending you happy thoughts today! I miss you and Love You! Hi Ashley!!! I Love You!!!!!
Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, February 26, 2006 8:40 AM CST

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Alicia, Ciara, Hunter & Angel Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, February 25, 2006 10:49 AM CST

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Hi Allison, I wanted to let you know that I wore your ribbon proudly yesterday. I also carried your picture and the card telling about you in my purse so I could share with anyone who asked about the purple ribbon. I hope you can feel the love that so many are sending your way. Your website has been sent to several of our ministers and you are on many prayer lists here in Illiois. God bless you and have Mom give you a big hug from us. And then you do us a favor, ok, pass that hug on to Ashley. Love to you all Uncle Jeff and Aunt Cathy.
Cathy Lynch <kittyblurr@aol.com>
Maple Park, IL DeKalb - Saturday, February 25, 2006 8:31 AM CST

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Everyone wear your ribbons today! I have my on for the Mardi Gras parade today in downtown Gulfport. Temps here around 70 today but rain will come and go all day long. Have a wonderful day!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, February 25, 2006 8:05 AM CST

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Kim & Scotty (MPS II)
Kim <cottons@earthlink.net>
Modesto, CA - Saturday, February 25, 2006 2:58 AM CST

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Cute idea with the suckers Jenn. I wish I would have thought of it!!!!! Cute!!!! Rest easy Alli. Love you Tons!!! nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, February 24, 2006 7:00 PM CST

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Another good day of contact for me telling about my beautiful Granddaugher....and yes my Love Ashley, I talk about you as well. So many know you are the monkey in my palm tree!!!!!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, February 23, 2006 9:28 PM CST

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I got my purple ribbon today from Auntie Jessica. I work with Jessica and am honored that she offered me a ribbon to wear. I will wear it proudly and I also think you are adorable, Allison. What COURAGE you have.
Do you like Cinerella? She is my little girl's favorite pincess.
Jill Nelson <jnelson@ofsd.k12.wi.us>
Osseo, WI USA - Thursday, February 23, 2006 2:51 PM CST

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The tatoos are going like hot cakes at the Ice Cream Corner!I am having a good time telling everyone about My Alli!!
Hugs and Kisses, Love Nana
janelle kunellis <janellekunellis@yahoo.com>
- Thursday, February 23, 2006 7:42 AM CST

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Hi girls, thinking of you all!!
Love, Nana
janelle kunellis <janellekunellis@yahoo.com>
- Wednesday, February 22, 2006 5:11 PM CST

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Hi, I'm sorry that I havent signed your guestbook for a while, but life is so busy right now.

Hope you are doing great!



Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun,Trondheim, Norway - Tuesday, February 21, 2006 1:07 PM CST

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Monday, February 20, 2006 4:51 PM CST

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WOW! This is quite the historical event. Congratulations to the MPS Society. God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Monday, February 20, 2006 11:10 AM CST

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Jennifer, I just wanted to tell you that I watched Tami's slide show and I was so moved by it. What joy Allison must bring to you. I am truly deeply touched by the courage and love I saw in the pictures. Please give her a big hug from Uncle Jeff and Aunt Cathy. Love to you all.
Cathy L Lynch <Kittyblurr@aol.com>
Maple Park, IL DeKalb - Saturday, February 18, 2006 4:43 PM CST

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Hi All, I am ready to make my speech to my Church tomorrow. I have Alli's ribbon and picture with a brief explanation ready to hand each and everyone who attends Church in Diamondhead tomorrow. Thinking of you all! Love, Nana
Janelle Kunellis <janellekuneliis@yahoo.com>
- Saturday, February 18, 2006 6:34 AM CST

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A belated HAPPY BIRTHDAY Allison. What a pretty birthday cake. Your Uncle Jeff and I wanted you to know that we got your picture and the purple ribbon to wear on Feb 25. I have heard that you a are a very special girl. I hope I will be able to meet you sometime soon after I offically become your Aunt Cathy. You have a wonderful family and I am so happy that I am going to be part of it. Please say hi to everyone for us. Love Uncle Jeff and "Aunt" Cathy.
Cathy L Lynch <KITTYBLURR@AOL.COM>
Maple Park, IL DeKaLB - Friday, February 17, 2006 8:45 PM CST

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Oh you Big Beautiful Doll!! Love your new pictures and it sure looks like your birthday was too much fun! Great job on the cake Jim!! A princess for a Princess!!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, February 15, 2006 9:54 AM CST

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OMGosh!!!!!!! Ty now has a new favorite movie! Hey Now. You should see him try to dance to the music, while still trying to see the computer screen (LOL! I wish I had a movie of that!) Thanks so much for sharing Ali's wonderful slideshow/film Tami made!!! It is great. Caroline went to sleep early tonight and hasn't seen it yet- I am going to show her in the morning- I am sure she will be sending Ali a message after she is through veiwing it and OOOHHHing and AAAHHHHHing over it!!!!

Great birthday pics too!!! I am so glad Ali has had a nice birthday, I say you just shoot for a month long celebration, why not?!

Big hugs to Miss Smiles!

Love,

Kim and Ty <momtoty@yahoo.com>
Houston, TX - Wednesday, February 15, 2006 0:12 AM CST

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Sending lots of love and prayers your way.

3 BEG GIRLS

TAYYABA mom to ABEERAH, KHANSA, & ZAHRA BEG.
- Tuesday, February 14, 2006 6:56 PM CST

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HAPPY VALENTINE'S DAY!!!

LOVE
ANDREA & KATIE
ANDREA VAN GHLE <andrea_vanghle@yahoo.com>
- Tuesday, February 14, 2006 11:22 AM CST

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Love, Kim & Scotty <cottons@earthlink.net >
Modesto, ca - Tuesday, February 14, 2006 10:03 AM CST

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HAPPY VALENTINES DAY!!

Glad to hear all is well!! As always you are all in our thoughts and prayers~~
Take care~~ Becky and Emma
www.caringbridge.org/canada/prettygirl
The Hardman's <bbjhardman@sympatico.ca>
Hanover, ONT Canada - Tuesday, February 14, 2006 8:51 AM CST

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I love your birthday pictures, especially the cake. You are such a princess. Happy Valentine's Day
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Monday, February 13, 2006 10:38 PM CST

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GO JIM!!
HAPPY VALENTINE'S DAY!!!
LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
LATOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
- Monday, February 13, 2006 7:36 PM CST

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HAPPY VALENTINE'S DAY!!


PAULINA JUMP <CALJUMP@MSN.COM>
SPARTA, KY USA - Monday, February 13, 2006 6:31 PM CST

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HAPPY VALENTINE'S DAY!!!!

Jenn Deskins
- Monday, February 13, 2006 6:10 PM CST

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Love,
Patty and Jesse
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Monday, February 13, 2006 5:52 PM CST

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, February 12, 2006 12:26 AM CST

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I have now completed my MPS/ML Awareness ribbons. thanks Jenn for your leadership in letting us know all about MSp/ML!!
Love, Mom
Janellis Kunellis <janellekunellis@yahoo.com>
- Friday, February 10, 2006 8:12 PM CST

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Thinking about Miss Smiley and Mommy today, Zachie was talking about his friend Ali with the casts this morning. :0)))) I love the picture with the snowman!!! Too cute!!! Have a great weekend!!
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <Jhrufus@aol.com>
Syracuse, NY USA - Friday, February 10, 2006 1:05 PM CST

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Happy Belated Birthday!!!! Hope all of your wishes come true!!!!!!
www.caringbridge.org/visit/littleangel
Anita and Adriana Stanforth
- Friday, February 10, 2006 9:28 AM CST

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Hey there Five Year Old! Hope your day was great!!!!
Hugs, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, February 7, 2006 7:46 PM CST

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I'M LATE I'M LATE FOR A VERY IMPORTANT DATE,BUT THEY SAY BETTER LATE THAN NEVER AND I DIDN'T FORGET.I'VE BEEN SO BUSY AROUND HERE IT JUST SLIPPED.ANYWAY,HAPPY BIRTHDAY TO YOU,HAPPY BIRTHDAY TO YOU,HAPPY BIRTHDAY ALLISON,HAPPY BIRTHDAY TO YOU:):):)XOXOXO LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
LATOSHA <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILL USA - Tuesday, February 7, 2006 3:28 PM CST

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HAPPY BELATED BIRTHDAY TO YOU, HAPPY BELATED BIRTHDAY TO YOU, HAPPY BELATED BIRTHDAY DEAR ALLISONNNNNN, HAPPY BELATED BIRTHDAY TO YOUUUUUUUUU!!!!!!!!!!!!!
I'm so sorry I missed Miss Smiley's B'day, I so suck!
Hoping it was a wonderful time for all!!!! I suck!!! :(

Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <Jhrufus@aol.com>
Syracuse, NY Usa - Monday, February 6, 2006 9:54 AM CST

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Hi there Jen and family,
I just wanted to take the time to write a little note to you and the family. I so enjoyed seeing everyone again. Thanks for sharing Nana with me for a few hours! Allison is so grown up and has done so well. It was so fun to take Ashley and Allison shopping and spend some time with them. What wonderful personalities and what a blessed family you have. Much love to all, Lois :-)

Lois Mauch <lmauch@cableone.net>
West Fargo, ND United States - Monday, February 6, 2006 9:51 AM CST

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Well now it is official that Allison May is now 5 years old! Have a great start to your new age Alli!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Monday, February 6, 2006 7:26 AM CST

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, February 5, 2006 2:06 PM CST

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HAPPY HAPPY BIRTHDAY, BIG GIRL!!!!
Love, Lisa Post <LMPOST@cox.net>
- Sunday, February 5, 2006 11:16 AM CST

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HAPPY 5TH BIRTHDAY ALLISON....SENDING WARM HUGS YOUR WAY!!!!!
Susan Ries <Jagators24@msn.com www.caringbridge.org/page/tommyries>
Jacksonville, Fl - Sunday, February 5, 2006 9:50 AM CST

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Happy Birthday to you
Happy Birthday to you
Happy Birthday sweet Ali
Happy Birthday to you
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, February 5, 2006 9:27 AM CST

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Happy, Happy Birthday Baby! Have a wonderful Birthday and I will be thinking of you all day today. I'll be calling you today!
Hugs and Kisses, Love Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, February 5, 2006 6:50 AM CST

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HAPPY BIRTHDAY!!!!

Hope you have a WONDERFUL day and get all you wish for!!!!!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown, KY - Sunday, February 5, 2006 3:00 AM CST

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Ally,
Hope you have a wonderful Birthday!
Love,
Kim and Scotty
Kim & Scotty <cottons@earthlink.net >
Modesto, ca - Saturday, February 4, 2006 12:41 AM CST

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One more day Alli....then my baby doll will be 5! You are such a gift to us Alli and I love you tons!!!! I'll be calling you tomorrow so I can sing Happy Birthday to you for real!!!!
Love Your Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, February 4, 2006 9:55 AM CST

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Hi Alli, I sure do miss you and your sister and your Mom and Dad!! Thank you for a wonderful week. I love you all.
Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, February 2, 2006 9:06 PM CST

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Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, February 2, 2006 3:31 PM CST

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Jennifer, just wanted to thank you for the MPS/ML awarenes day card. Alli has been such a blessing in our Basic Training Church School, she is the life of the party, always the first to sing, dance and tell stories, we are very lucky to have her in our class. Thank you for sharing the information on her disorder. If there is anything I can do, please let me know. Our prayers are with you and your family. Tina, Tasha & Tessa
Tina Morast <Tmorast@farmersagent.com>
Bismarck, ND USA - Thursday, February 2, 2006 9:07 AM CST

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HI PRETTY GIRL!!I LOVE THE NEW PICS.I DIDN'T GET TO SEE THE SLIDE SHOW BECAUSE I COULDN'T GET IT TO PASTE.STAY HEALTHY.XOXO 4 U.LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILL - Wednesday, February 1, 2006 9:46 AM CST

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Jenn and Jim, You are sooooo blessed to have such beautiful daughters! Those new pictures brought tears of joy. Cassie has a new snowman, too! (Excuse me, snowgirl.) Happy Birthday Allison!!!!!!!!We love you all!
Becky, Jacob, Brenden, and Cassie <omeara42@hotmail.com>
moorhead , mn usa - Tuesday, January 31, 2006 11:34 PM CST

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Have a Great Birthday!!!!!!!
Maria Tuckett <Maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett/>
Murray, Ut US - Tuesday, January 31, 2006 7:54 PM CST

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Happy 5th Birthday, Alli! Enjoy your birthday week with all your friends and family!
Love, Lisa Post <LMPOST@cox.net>
- Tuesday, January 31, 2006 6:15 AM CST

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Allison Happy Birthday...I know its early..Wishing you many more and may you have the Happiest Day..
Susan Ries <Jagators24@msn.com www.caringbridge.org/page/tommyries>
Jacksonville, Fl - Monday, January 30, 2006 12:11 AM CST

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Well it sounds like things are going good for you guys!!! Looks like Alli has been having lots of fun in the snow and with the company!!!! I wish we had enough snow to make a snowman...but we haven't really even gotten enough to talk about this year.:(
Jenn Deskins <tylersmommy11304@yahoo.com>
- Sunday, January 29, 2006 8:23 PM CST

---

Thinking of you

Best wishes always
Maria Tuckett <cainringbridge.org/ut/tuckett;maria.tuckett@jetblue.com>
Murray, ut us - Thursday, January 26, 2006 2:56 AM CST

---

Just popping in to say hello!!!



Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, January 25, 2006 11:38 PM CST

---

HI EVERYONE!!JUST CHECKING IN TO SEE HOW ALLISON IS DOING.OXOXOXOXO.STAY HEALTHY ALI.LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
- Wednesday, January 25, 2006 4:25 PM CST

---

Hi! Just checking in to see how Allison is doing...I love the new pics! She is so beautiful!
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Tuesday, January 24, 2006 10:36 PM CST

---

My little Baby Doll, Sending hugs and kisses your way!
janelle kunellis <janellekunellis@yahoo.com>
- Saturday, January 21, 2006 5:18 PM CST

---

Hi Alli, I miss you and will see you very, very soon!
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, January 20, 2006 8:44 PM CST

---

Hey Girls, Miss you all and waiting to see you all!!

Love, Nana
Janelle Kunellis <janellekuellis@yahoo.com>
- Wednesday, January 18, 2006 7:47 PM CST

---

Just wanted to send you an extra big Thank You for your advice on Zach's surgery and for the pics, they helped Zachie prepare and he has been so good about them. One hurts a lot more than the other though. :0( Glad to see your mom is doing well and safe, my heart goes out to all the people who have lost so much down there.
Thanks again Jenn, it was so nice to catch up a bit!
give those beautiful girls big hugs from us!!!
xxx's & ooo's

Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <Jhrufus@aol.com>
syracuse, NY usa - Tuesday, January 17, 2006 2:17 PM CST

---

Hi All, John and I went into New Orleans today. So Sad. There are miles and miles of empty crushed homes. It is scary. So many water soaked cars left or thrown into, onto everywhere! And I mean hundreds of cars. And of course thousand of homes left in shambles. No home to go back to...no electricity in most neighborhoods....no one there. It is like one HUGE ghost town. I was glad to leave and thankful that I had a home to go home to. there are thousands of people without their homes down here. New Orleans is a LONG way off from coming back.
enough of that....how are my girls? I miss you and can't wait to see you....now when is that birthday party for that little girl? ummmmm I wonder if I can make it? Is my invitation in the mail yet Alli?
Hugs and Kisses! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, January 15, 2006 8:34 PM CST

---

A hug is just a way to say,
I love you in a special way,
To tell that someone special,
I care about you in every way.

In your hug is the circle of life.
A new begining to an endless day
A ray of hope to light your way.
Take a hug and pass it on
don't save them up it can't be done.

Big Hugs for you!!!



Love,
Patty and Jesse

Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Sunday, January 15, 2006 9:05 AM CST

---

Checking on my babies...Love You, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, January 13, 2006 1:20 PM CST

---

How is the weather in North Dakota???? Is it warm enough for me to visit? LOL! Thinking of all my girls today.

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, January 13, 2006 6:31 AM CST

---

I went shopping for two VERY. VERY special girls!!!! My suitcase will be filled!!!
I love you!!!

Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, January 10, 2006 7:38 PM CST

---

Just wanted to stop by, I got your web site from another MPS family. Your daughter is sooo cute!!!! My daughter also has MPS 1 and is currently under going a BMT (Jan. 19). I will check back often, good luck with the port issues!! I will keep you and your family in my prayers!!!
www.caringbridge.org/visit/littleangel
Take Care
Anita and Adriana (MPS1)
- Saturday, January 7, 2006 7:24 PM CST

---

I love the new pictures. Both your girls are so beautiful with the most amazing hair!! Glad to read you had a great Christmas!!
Take care!!
Becky and Emma-www2.caringbridge.org/canada/prettygirl
Becky and Emma <bbjhardman@sympatico.ca>
Hanover, Ont Canada - Friday, January 6, 2006 11:27 PM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, January 6, 2006 6:14 PM CST

---

Hi Babe, I love your new pictures! Can't wait to see the video!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, January 5, 2006 11:48 AM CST

---

Hi Allison!
I'm glad you liked the christmascard I sent you.
I hope you are doing fine :)
Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Wednesday, January 4, 2006 4:57 AM CST

---

HI ALLI AND JEN
JUST WANTED TO STOP BY AND CHECK ON YOU GUYS AND WE WISH YOU THE BEST WITH YOUR PORT WE LOVE THE NEW PICS OF YOU AND SISSY.WE WILL BE BACK TO CHECK ON YOU GUYS HUGS AND KISSES KATHY AND KATILYNN PRESTON.www.caringbridge.org/ky/katilynnsmom
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
tomahawk, KY USA - Tuesday, January 3, 2006 11:39 AM CST

---

Allison!
I cant handle that cute picture of you at your concert! I should have known you would dress up as a little Santa!
I am coming to see you soon and to watch the video of your concert! :)
Aunt Jessica <jshu21@msn.com>
Osseo, WI USA - Tuesday, January 3, 2006 11:04 AM CST

---

Happy New Year! Alli will be in my thoughts and prayers so that her port will clear and no surgery will need to be done! The new pics are wonderful!
Lisa Post <LMPOST@cox.net>
- Monday, January 2, 2006 2:26 PM CST

---

Love,
Patty and Jesse
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Sunday, January 1, 2006 7:17 AM CST

---

Happy New Year, may 2006 be a good year.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, January 1, 2006 6:04 AM CST

---

I hope this year bring lots of joy and happiness for your family.
 

BEG GIRLS

Tayyaba Beg <Tayyaba@helpourgirls.com>
NJ - Sunday, January 1, 2006 0:38 AM CST

---

HAPPY NEW YEAR!!
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Sunday, January 1, 2006 0:16 AM CST

---

Wishing you all a Happy New Year full of nothing but the best!

Stacey & Teagan Pevler <stacmer14@yahoo.com>
Abilene, TX www.caringbridge.org/visit/teaganpaige - Saturday, December 31, 2005 8:47 PM CST

---

HAPPY NEW YEAR!!

I hope the New Year brings much Health and Happiness to you all!!!

Take care
Becky
Emma's Mommy-www2.caringbridge.org/canada/prettygirl
The Hardman's <bbjhardman@sympatico.ca>
Hanover, Ont Canada - Saturday, December 31, 2005 11:40 AM CST

---

Kim & Scotty <cottons@earthlink.net>
Modesto, CA - Saturday, December 31, 2005 9:48 AM CST

---

HAPPY NEW YEAR!!! WISHING YOU THE BEST FOR 2006!!

ANDREW'S WORLD

Paulina and Andrew Jump MPS III B <caljump@msn.com>
Sparta, Ky USA - Saturday, December 31, 2005 8:03 AM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, December 31, 2005 1:04 AM CST

---

HAPPY NEW YEAR!!!
Jenn Deskins
- Saturday, December 31, 2005 0:56 AM CST

---

Dear Allison,

May 2006 be a blessed year for you and your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Friday, December 30, 2005 7:32 PM CST

---

DROPPING IN TO SAY HI AND TO SEE IF THE GIRLS GOT LOTS OF TOYS.LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK
BLOOMINGTON, ILL USA - Friday, December 30, 2005 3:57 PM CST

---

Thanks for the christmas card :) it was beautiful, you have 2 beautiful daughters!



Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
skaun, trondheim, Norway - Thursday, December 29, 2005 2:28 PM CST

---

HI GUYS
JUST WANTED TO STOP BY AND WISH YOU ALL A MERRY CHRISTMAS AND A HEALTHY AND HAPPY NEW YEAR.HUGS AND KISSES KATHY AND KATILYNN PRESTON
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Sunday, December 25, 2005 2:39 PM CST

---

Merry Christmas Cutie Pie
Jack Frye <drafrye@aol.com>
- Sunday, December 25, 2005 8:07 AM CST

---

MERRY CHRISTMAS!
Jenn Deskins
- Saturday, December 24, 2005 9:07 PM CST

---

Thinking of you today. I hope you all have a blessed holiday! Thank You for the Christmas Photo Card.



BEG GIRLS


Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Saturday, December 24, 2005 12:17 AM CST

---

Thank You Jenn for the CUTE Christmas Photo Card and for thinking of me to send me one of the girls!! Hope you guys have a Great Holiday Season and a Very Merry Christmas filled with lots of memories with family and friends!! Love, your friend, Erica
www.caringbridge.org/wi/ericathiel
Erica Thiel <scheiecat@yahoo.com>
Beaver Dam, WI USA - Wednesday, December 21, 2005 8:42 PM CST

---

Thank you Jennifer for sharing your website with me. Allison what a star you are. You did such a wonderful job at your Christmas program. You really knew your songs. I am so glad you are Michael's friend.
Have a wonderful Christmas.

Becky Matthews <rebecca239@bis.midco.net>
Bismarck, ND - Wednesday, December 21, 2005 8:46 AM CST

---

Thank you for the Christmas Card. I just love the picture of Ally and Ashley! Scotty also loves it!
What a great picture of Ally and Santa.

Hope you have a Wonderful Christmas.
Love,
Kim and Scotty

Kim Whitecotton (Mom to Scotty MPS II) www.caringbridge.org/ca/friends <cottons@earthlink.net>
- Sunday, December 18, 2005 1:44 PM CST

---

Hope the port issues are resolved by now. Have a very Merry Christmas with those beautiful girls of yours!
Lisa Post <LMPOST@cox.net>
- Saturday, December 17, 2005 9:21 AM CST

---

Had to get another look at the beautiful big girl in her blue jeans! Alli...you are too cute for words!!!!!

Hugs and Kisses, Nana

Hugs and Kisses for Ashley too!!!!
janelle kunellis <janellekunellis@yahoo.com>
- Friday, December 16, 2005 8:03 PM CST

---

MERRY CHRISTMAS ALLISON.
LOVE TOSHA & SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILL USA - Friday, December 16, 2005 7:46 PM CST

---

Here comes Alli...with Santa Claus! Darling picture in those jeans. I love it!!
Have a great end of the week...I'll call you all this weekend.

Love, Nana
janelle kunellis <janellekunellis@yahoo.com>
- Friday, December 16, 2005 7:04 AM CST

---

HI GUYS
JUST WANTED TO STOP BY AND CHECK ON YOU GUYS SORRY ALLI WAS HAING PROBLEMS WITH HER PORT.KATILYNN WAS TO BUT THAT HAS CLEARED UP I HOPE ALLI IS TO.WE HOPE THAT YOU ALL HAVE A MERRY CHRISTMAS AND A HEALTH NEW YEAR.HUGS AND KISSES KATHY AND KATILYNN PRESTON.www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, December 15, 2005 2:24 PM CST

---

Just checking in, I hope all is well! Allison is in my prayers!
www.caringbridge.org/visit/katelynvanghle
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Thursday, December 15, 2005 1:38 AM CST

---

Thank you for the beautiful photo Christmas card. I hope your family has a happy, healthy Holiday! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Wednesday, December 14, 2005 1:19 PM CST

---

WOW What a cute doll with her flip!!!! Allison you are on my fridge and I also noticed that you girls are the only picture my Mom has up in her FEMA trailer!!
Missing you All, Love, Nana
janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, December 13, 2005 6:52 PM CST

---

I was thinking about the Sunflower today…as if that surprises anyone! On my computer at work I have a picture of my son Josh, my daughter Kaity, and last but not least, the Sunflower! That way I can see her every single day! I was sad to hear about the port problems but even happier to hear that the problem is now solved and the Sunflower will not need surgery! Woooohoooo to that! Donald Duck and I will be dropping a little something in the mail for the kids soon. We’ve had their Christmas gifts for quite awhile but we still haven’t mailed them! I guess we better hurry huh?!?!?!

Lots of love and loads of kisses!
Missing you guys,
Jess, Donald Duck, Josh and Angel Kaity Bug!
Angel Kaity’s web-site

Jessica Wellman
Crandall, IN USA - Tuesday, December 13, 2005 6:45 PM CST

---

Hello! I just wanted to tell you all thank you again for this great experience with the mentorship. I learned a lot, and you are such a wonderful family. I wish we could have spent more time together, but i definitely can tell you are all very positive and that is wonderful. Allison you are such a happy and cute young lady!! I hope you always stay positive, and I will always keep you in my prayers. Thank you again, and take care.
Ashley K- U Mary Social Work <ashleykottsick@hotmail.com>
Bismarck, ND - Sunday, December 11, 2005 9:08 PM CST

---

Hi thank you for the Christmas card! The picture is sooo cute! Allison is in my prayers! Have a great Christmas!


Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Saturday, December 10, 2005 0:36 AM CST

---

Just checking in on Alli. Our thoughts and prayers are with you always. We were thinking of you all day today. Hope all went well.

The girls send a "Hi" to Ashley...(and a smooch to Alli from Lucas :)
Chad, Jane, McKenzie, Haydn and Lucas
Andover, MN - Wednesday, December 7, 2005 9:17 PM CST

---

Just checking in on Alli and letting you know that I am praying and hoping that things improve for Alli soon. I know how I hate when the have to put my little one to sleep for any procedures.

best wishes.
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, UT Us - Tuesday, December 6, 2005 3:02 AM CST

---

Just stopping by to check in and see how Miss Alli is doing!! I always read your posts on the forum and love seeing the pictures!!! I seen my Genzyme Team on Friday at ERT, and Mary asked me if I had. had hte chance to meet your family yet so I guess this will have to be my mission! ;) Lots of Love and Hugs,
Erica Thiel www.caringbridge.org/wi/ericathiel <scheiecat@yahoo.com>
Beaver Dam, Wi USA - Monday, December 5, 2005 5:34 PM CST

---

Lost my entry...maybe something is not working?

Love, Mom
janelle kunellis <janellekunellis@yahoo.com>
Gulfport, MS - Monday, December 5, 2005 6:54 AM CST

---

HI
THIS IS MARTI LOUGHE SYDNEY'S AUNT I JUST WANTED TO SAY HAPPY HOLIDAYS FROM THE FAMILY!!LOVE YA!!
MARTI LOUGHE <miss_blondie_016@hotmail.com>
NORMAL, ILLINOIS UNITED STATES OF AMERICA - Sunday, December 4, 2005 6:46 PM CST

---

Thinking of you and hoping all goes well today. You are always in our thoughts and prayers. Much love and best wishes from cold NYC,
Claudina (Caterina's mom) <claubonetti@aol.com>
New York, NY - Saturday, December 3, 2005 6:08 PM CST

---

Hi sis see you after school.
Ashley <ashley8@bis.net>
Bismark, ND U.S.A - Thursday, December 1, 2005 10:10 AM CST

---

Just stopping in to say "HI" and let you guys know I'm thinking of you!
I always love seeing the new pictures you post!!! It's always great to see Alli's smiling face!! She is such a doll!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Wednesday, November 30, 2005 12:11 AM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, November 29, 2005 1:34 PM CST

---

I just love those pictures of my Babies!!!! I swear...Ashley and Jessica could be related with those eyes!! Alli looks like she was having a BALL with Aunt Jessica....that lucky duck!! Miss you all over Thanksgiving.
Love, Mom to my girls and Nana to the Grand Babies!!
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, November 26, 2005 8:54 PM CST

---

I'm glad everything is going well!! I love the new pics...Allison is sooooo cute!!!!!


Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Saturday, November 26, 2005 1:42 AM CST

---

Hi! Hope you all had a wonderful Thanksgiving! I love the new pictures! Love and miss you.
Becky, Jacob, Brenden, and Cassie <omeara42@hotmail.com>
moorhead , mn usa - Friday, November 25, 2005 4:28 PM CST

---

HAPPY THANKSGIVING!!!

ANDREW'S WORLD

Paulina and Andrew Jump MPS III B <caljump@msn.com>
Sparta, KY USA - Thursday, November 24, 2005 6:58 AM CST

---

HAPPY TURKEY DAY!!!!

hope to see you guys soon!!!
Sammie <Tinkerbell103311@AOL.com>
La Verne , CA USA - Thursday, November 24, 2005 2:01 AM CST

---

Happy Thanksgiving!!!

www.caringbridge.org/visit/katelynvanghle
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Wednesday, November 23, 2005 11:27 PM CST

---

HAPPY THANKSGIVING!!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Wednesday, November 23, 2005 11:16 PM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, November 23, 2005 8:00 PM CST

---

Hi Girls, I talked to Aunt Jessica today and she is on her way to see you!!

Hugs and kisses, Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, November 22, 2005 7:00 PM CST

---

HI JEN AND ALLI
JSUT WANTED TO STOP BY AND WISH YOU AND YOUR FAMILY A HAPPY THANKSGIVING AND ALI TELL GRANNY HAPPY THANKSGIVING FROM ME AND KATILYNN ALSO.HUGS AND KISSES KATHY AND KATILYNN PRESTON www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, November 21, 2005 5:22 PM CST

---

Hello!

I'm so glad Allison is doing well! Congrats on her 104th infusion and lost tooth!!!! She is an absolute doll!

Andrea & Katie Van Ghle
www.caringbridge.org/visit/katelynvanghle
Andrea Van Ghle <andrea_vanghle@yahoo.com>
OH - Sunday, November 20, 2005 9:59 PM CST

---

Hi All! Thinking of you all tonight as I wrap all the Christmas presents I brought in Fargo!!!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, November 17, 2005 9:58 PM CST

---

Hello!! I hope you are doing well. I wanted to check the site out to see how you are doing. Looks like things are going well. Alli, you lost a tooth!! How fun!! Know you are in my prayers and that I miss you all. I have some pictures that I want to send you of when I was there last. There are so great pictures! I look at them often to remind me of being able to work with you, Jen, and getting to know the kids, especially your girls. I adore them. Hugs to you all. You're in my prayers always! God bless!
Anne Devine <adevine@focusonline.org>
Edgewater, MD 21037 - Sunday, November 13, 2005 12:13 AM CST

---

hi allison and jen
just wanted to stop by and check on you guys and i am so glad that alli loves school that is great.i am glad that you and your family are doing great.i will be back to check on you guys.hugs and kisses kathy and katilynn preston
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, November 12, 2005 4:26 PM CST

---

I talked to my girls today! Sending you my love and kisses!! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, November 10, 2005 10:11 PM CST

---

Hey Alison! I was thinking of all MPS families in Arizona today since we're unable to be there. Thought I'd check in in on MPS kids. I hope you and your family are doing wonderful! Take care and God bless you Sweet Girl...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Thursday, November 10, 2005 11:24 AM CST

---

Hi! Just checking in on the little miss. I love the tooth fairy story. Dougie
is the same way. Last time he lost a tooth he told me, "just call grandma"!
She always comes through with a big bag of M&M's! Works for me. :)
Rhonda Sampson Mom to Dougie (I-cell disease) <Mlsamps@valornet.com>
Broken Arrow, Ok United States - Thursday, November 10, 2005 10:29 AM CST

---

Wow! Nice picture of everyone. I know that getting to meet each other face to face is so important. Your support for each other is vital.
Smiles to all as we have aother summy day here in Hurricane katrinia land!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, November 8, 2005 10:24 AM CST

---

Hi Girls!! Missing you today....Hugs and kisses-Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, November 6, 2005 8:48 PM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, November 4, 2005 11:55 AM CST

---

Hi. My daughter Adriana also has MPS1 Hurlers Syndrome. She is 20 months old and is getting ready for a BMT on the 17th of November. I ran across your site a few months ago when I was first told of her having hurlers and it brought tears to my eyes, no family or child should have to go through this. I got a bunch of different sites from Jenn Deskins to visit and this was one of them and as soon as I brought it up I remembered running across this and wanted to leave a note. Your daughter is sooo adorable! I'm glad things are going great. I'll keep checking in and see how she is doing. also you and your family are in my prayers.
Anita and Adriana Stanforth
www.caringbridge.org/visit/littleangel

Anita <lpn_06@yahho.com>
Washington Court House, OH - Thursday, November 3, 2005 6:34 PM CST

---

Hi Girls! How was Halloween????? Can't wait to see the pictures of you both!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, November 1, 2005 9:57 AM CST

---

hi jenny i love you !! tel everyone hi
Maranda Myrold <Myrold_07@hotmail.com>
Crookston, MN US - Monday, October 31, 2005 3:07 PM CST

---

Happy Halloween Ashley & Alli!!!!
Hope you both have lots of fun tonight, make sure mommy takes lots of pics for us!!!! :0)
Love and Hugs,
The Haggett's, John, Brenda & Zachie!
Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <Jhrufus@aol.com>
Syracuse, Ny usa - Monday, October 31, 2005 11:00 AM CST

---

HAPPY HALLOWEEN!!!!!
Jenn and Tyler Deskins
- Monday, October 31, 2005 1:06 AM CST

---

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, October 30, 2005 8:39 PM CST

---

Boo! to my babies!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, October 30, 2005 4:32 PM CST

---

Happy Halloween Sweet Girl. Much love to you and your family...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Sunday, October 30, 2005 4:27 PM CST

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Just wanted to stop by and say "HI" and hope you have fun tomorrow trick or treating!! Be careful not to lose any more teeth though, you need em for all that candy!! :0)
Love and Hugs, The Haggett's , John, Brenda & Zachie
Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <Jhrufus@aol.com>
syracuse, New York usa - Sunday, October 30, 2005 1:14 PM CST

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Just wanted to stop by and say Hello!! We have been thinking of you often! Have a fun and safe Halloween!
Hugs,
Patty and Jesse
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Saturday, October 29, 2005 3:38 PM CDT

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HI GUYS, JUST STOPPIN BY TO SAY THAT I HAD A WONDERFUL TIME ON SAT. IT WAS SO GREAT TO SEE LOL MISS ALLI. I SWEAR MY COUSIN WANTED TO KEEP HER!!! TTYL,
GABBI RIVAS <JACALERA@SBCGLOBAL.NET>
SOUTH EL MONTE, CA USA - Wednesday, October 26, 2005 8:46 PM CDT

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Hi All, Welcome back to ND!! I bet the weather was SUPER!! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, October 26, 2005 2:30 PM CDT

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Hi Alli
love the piture of Me & Alli Mom
Bye Alli
Ashley
Ashley Restemayer <ashley 8@bis .net>
Bismark, ND U.S.A - Tuesday, October 25, 2005 10:23 AM CDT

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I hope you guys have a safe and FUN trip to California!!!!!
Jennifer Deskins
www.caringbridge.org/ky/tylerdeskins, - Friday, October 21, 2005 10:07 PM CDT

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hi jen and ally
just wanted to stop by and check on you guys.i am here a lot just sometimes i dont get the chance to sign the guest book.katilynns port does that to where there is no blood return and they have to put heprin also.well i will be back soon to check on you guys.i love the pic of ally on the front it is so pretty.well hope you guys have a great weekend.hugs and kisses kathy and katilynn preston.www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, October 20, 2005 5:17 PM CDT

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Happy Travels!!!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, October 20, 2005 10:42 AM CDT

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YIPPEE!!! We get to see you again tomorrow at the run!!! I'll bring the Goldfish!




Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, October 20, 2005 9:51 AM CDT

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A save and fun trip for you all!!!

Love, Your Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, October 18, 2005 4:24 PM CDT

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Good Luck with the walk and have a great time! Hugs Laura (mum to Will MPS2)
Laura Brodie <labro4will@yaho.co.uk>
Birmingham, England - Tuesday, October 18, 2005 4:17 PM CDT

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Your little girl is so adorable!
Becky
Remsen, IA - Tuesday, October 18, 2005 2:55 PM CDT

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Have a wonderful trip Restemayer's!!!!!!

Love, your Mother and your Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, October 16, 2005 7:26 PM CDT

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Hi!! Just wanted to let you know I was thinking about you guys!!!
I absolutely love seeing all of Alli's new pictures!!! She is too cute beyond words!!! She always looks so happy!!! What a doll baby!!!
I hope you guys have a nice, safe trip to California!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins, - Wednesday, October 12, 2005 7:27 PM CDT

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WOW!!!!!!!!!!!!!!!! Right now-this instant- there are 50275 hits! Talk about friends and family stepping up to check on Alli. Thank you all...and my second check is in the mail as of tomorrow! So many people care about our baby doll Alli!!
Smiling all the way to the mailbox, Janelle
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, October 12, 2005 4:11 PM CDT

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Alli, You look so happy with that blanket!!!! I just want to open up my arms and pick you up!!!!! You need to talk to Aunt Jessica about the trama of a worn out blanket...let's see...Jess is about 26 years old AND she STILL has her blanket (repaired by me several times!!)
Miss you lots tonight.

Love, Nana
97 more "hits" on this sight....come on friends and family. Let's get Jenn and Jim, Ashley and Alli to 50,000 hits so I will add another $100 to the quest for a cure for MPS!!
Janelle Kunellis <janellekunellis@yahoo.com>
- Monday, October 10, 2005 9:42 PM CDT

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Hi Alli,

I will bring some Goldfish crackers to the run so Hunter doesn't eat your again!




Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Monday, October 10, 2005 10:25 AM CDT

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Hugs from Osseo, WI! You don't know me....I am a friend of your Aunt Jessica's and I check your website every once in a while to see how you are doing! Jessica is doing great! We love having her in our school, and she has done GREAT things for our girls volleyball program. I bet you are as proud of her, as she is of you! I love it when her eyes light up when she tells us about you and your family! Just wanted to help your Grandmother's goal of getting to 50,000 hits before 10/22, and to tell you there are lots of prayers and affection coming your way from Osseo!
Naomi Bodway <naomigb@aol.com>
Osseo, WI 54758 - Saturday, October 8, 2005 9:51 AM CDT

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Happy Sat. Everyone!!
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, October 8, 2005 8:39 AM CDT

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Hi Allison & family,
Your P&A friends (Pam, Judy, Carol and Bruce) are sure happy to be working with you and your family. We look forward to seeing you more at home and school and getting to know you better.
Pamela Mack, ND Protection & Advocacy Project <pmack@state.nd.us>
Bismarck, ND USA - Thursday, October 6, 2005 9:48 AM CDT

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I was going through the Trimper guestbook, recalling the joy of Maddie's miracle, when I came across your entry. You don't know me, but I used to check on Allison daily, then I lost her website address a very long time ago (2003, I think). When I saw it on the Trimper site, I went, "Allison, North Dakota? That's that little girl with MPS I used to check on!" So I came here, and YEP, it's she! Praise the Lord that I found you again - I had lost the link in one of my frequent crashes on my Sony Vaio! :)

I'm so very thrilled to hear that Allision is doing so well and is in school! What God has wrought! Praise the Lord for her beautiful life, and God bless the walk planned for this month - I'll be checking back to see how she is doing - the Lord is so good to us!
Carolyn Wyman <re_born@sbcglobal.net>
Belding, MI TRIUMPHANT Trimper TRIO Territory - Thursday, October 6, 2005 8:20 AM CDT

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As of this morning (Thurs. Oct. 6) this website is 307 "hits" short of 50,000 visits! Wow! As Alli's Grandmother, I would like to challenge Alli's visitors to make this website hit 50,000 visits before the walk/run on Oct 22. I am mailing in my check this morning to help in aiding the medical field in finding a cure for MPS. I will personally send in another check for $100 in the name of the person who is number 50,000!!!!
I know how these websites are a line to open communication for the MPS families and their friends. I thank each and everyone of you for checking and rechecking on the progress of my Granddaughter Allison. My daughter Jennifer appreciates your comments so much and I have made family-like friends via the Internet. So 307 left to go to hit that milestone of 50,000 visitors to Alli's website. Jenn and Jim, Ashley and Allison are all going to the Walk/Run on Oct. 22. My first check goes in today, my next one will be in honor of that 50,000 hit!

Janelle (Alli's Nana and Jennifer's Mom)
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, October 6, 2005 7:03 AM CDT

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BRRRR it's getting colder in ND...hot here in the 90's! Ice cream anyone????

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, October 5, 2005 9:27 PM CDT

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HI ALLI. WOW HOW YOU HAVE GROWN SINCE THE LAST TIME I SAW YOU!! YOUR SUCH A BIG GIRL, GOIN TO SCHOOL AND EVERYTHING. SEE YOU SOON, REI AND NIKK'S MOMMY!!! LOVE YOU!!
GABBI RIVAS <JACALERA@SBCGLOBAL.NET>
SOUTH EL MONTE, CA USA - Monday, October 3, 2005 10:11 AM CDT

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Hi Girls....Miss you all!!

love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, October 2, 2005 10:22 PM CDT

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Hi Alli and Ashley, Nana loves you!!


Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, September 29, 2005 8:30 PM CDT

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Still looking and looking at my Baby Doll! I just can't seem to quit. I miss you all.

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, September 29, 2005 3:10 AM CDT

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Hey Girls and Jim, I am finally able to get into the internet!! I have been reading all the new enteries and your journal Jenn. My how beautiful Alli is in her new clothes for school. How I remember how you Jenn, did not give me one glance as you stutted into your first school room! My heart was bledding...letting go is the hardest when it's the first day of school!!!! Alli was dressed and ready for that first step away. What a doll. I bet you told her to "do her best". She is such a charmer!!

Hugs and Smiles to All. I am so happy to finally have cable again so I can write to all my friends.

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, September 27, 2005 6:05 AM CDT

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Hello!

I can't wait to see you all next month, I am so excited!




Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, September 25, 2005 12:20 AM CDT

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Hello!

I can't wait to see you all next month, I am so excited!




Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, September 25, 2005 12:19 AM CDT

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Thanks for the link from last years walk/run! I wish we could go this year, but that is quite far for us to travel and Tyler isn't allowed to be around crowds yet! Maybe next year Tyler will be able to be around more people and we can go! I would love to meet more MPS families!
I hope you guys have a wonderful time there! Tell everyone we said "hi" and we send our love!
Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins, - Wednesday, September 21, 2005 11:48 PM CDT

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O.K. I watched the slideshow and I saw Allison 9 times. You'll have to tell us what the real number is. She was so little last year, she's grown so much. She has a beautiful smile and sure looks like a happy child. I sure pray that they do find a cure for this terrible disorder. God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Wednesday, September 21, 2005 5:32 PM CDT

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Hi Allison - it's your long lost Godmother! Just wanted to tell you that all of us miss you and love you very much! You are so beautiful! XOXO!
Kara, Dan, Kaitlin, Hannah and Garrett <abdellaks@ci.durango.co.us>
Durango, CO USA - Monday, September 19, 2005 5:46 AM CDT

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Hi Allison!! I'm just stopping by to say hi and let you know that I'm thinking of you!! I hope you have a GREAT week! God bless and *warm hugs* ><>†<><

*Jennifer C* <jenniferc@ilovetocolor.com>
Eugene, OR USA - Monday, September 19, 2005 0:05 AM CDT

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Just stopping by to say I was thinking of you all today.
I hope the last week of school went well for the girls.
I had my first taste of separation anxiety and it was not pretty! I hope the news from your parents is looking up and they are holding their own.
God Bless, All our Love, The Haggett's
Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <Jhrufus@aol.com>
syracuse, NY usa - Sunday, September 11, 2005 5:21 PM CDT

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Your daughter is BEAUTIFUL! My son Sam also has MPS1 Hurler Syndrome. He is 9 years old (8 years post transplant)and doing great, except we were just told that he should have a spinal fusion done. His C1 C2 are unstable. We are TERRIFIED and looking for any that have had this done.

Heidi Caswell
Bedford, NH 03110 - Wednesday, September 7, 2005 8:19 PM CDT

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Alli,
Hope you're having some more fun at school this week. I love your back-to-school outfit!
love,
Kym
Kym Wigglesworth <kwigglesworth@nc.rr.com>
Apex, NC - Wednesday, September 7, 2005 9:21 AM CDT

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I love the pic of Ali in her cute little skirt for school!
I'm so glad she is enjoying it and doing well Hugs Laura (Mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, September 6, 2005 1:52 PM CDT

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Alli always looks so cute and happy. Just checking to see how well you're doing
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, UT US - Tuesday, September 6, 2005 2:24 AM CDT

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Just stopping in to say "hi"! I love the new pictures of Miss Alli...gosh, she is such a doll!!!! I'm glad that she is enjoying school! She looks so cute waiting for the school bus! and so happy!!

Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins, - Monday, September 5, 2005 8:36 PM CDT

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Alli,
You are so beautiful in your new picture! I pray that school continues to be as good and fun for you too! It is so exciting!
Let grandma know that I am keeping her in prayer too! We love you all!


Patty and Jesse
Jesse
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Monday, September 5, 2005 6:25 PM CDT

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Jenn,

I am in love with Alli's new picture!!!!!!! She looks soooooo grown up!! Caroline has a skirt and top just like Alli's for school, and when we looked at your site she said, "See mom, I told you Alli would be like my best friend, we even have the same clothes!!" she was os excited to see that she and Alli have the same taste in clothes (or that their mommies do!!) I am so glad to hear your parents and Nana are safe. We live in Houston and have been hit hard by this hurricane emotionally, as we have many friends in New Orleans, Covington, and the Mississippi coast whom have lost their homes and so much more. Actually, if you have time to watch Dateline NBC tonight (Monday the 5th) our church will be the backdrop in a story about a family hit hard by the storm whom are now being cared for by our church members along with many others. One of my girlfriends has 14 people and 4 dogs staying with her for atleast 7 weeks and it just goes on and on. It is so sad, the devistation of the storm, but it is also uplifting to see the way people pull together and help one another.

Please give Alli a huge hug from Caroline, Ty, and I. I will continue to pray for good news about Alli's spine and other worrisome neuro issues- how is all that going anyways? Any news? I may have missed something on the forum because I have not been able to visit as much the lat week or two. I will also pray that your Nana's home is repaired soon and that your parents can get back to their lives and their shop ASAP.
Love Always,
Kim, Ty, and Caroline
Kim Downham <jdownham@earthlink.net>
Houston, T - Monday, September 5, 2005 9:30 AM CDT

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Oh Jenn,
I'm so happy to hear that your mom and nana and safe and still have shelter, so many people have lost everything and most of all, peace of mind and if anyone can understand that, I believe it is parents like us!!
I'm just so relieved that your parents were spared so much of the devastation so many are feeling right now.
As for Miss Smiley, Oh my Lord she is toooo cute!!!!
Zachie's first day of Kindergarten is Tuesday and I'm already crying!! I hope Ali enjoys it more and more each week!! How is AShley liking her new class? Well, good job on the infusions as well, I wish we could have ours at home, they are the longest days!!! Worth every minute though that's for sure!! Well, just thinking of you and wishing you well. Lots of Love, Brenda
Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <jhrufus@aol.com>
Syracuse, New York usa - Monday, September 5, 2005 8:45 AM CDT

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Hello,

Just popping in to say HELLO!



Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, September 1, 2005 12:19 AM CDT

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HI JEN
DONT WORRY ABOOUT THE OUT BURST.WE AS PARENTS OF HURLER KIDS DESERVES A OUT BURST ANY TIME WE NEED ONE.OUR KIDS DONT DESERVE THIS AND WE DO EVERYTHINGI OUR POWER TO PROTECT OUR KIDS FROM EVERYTHING POSSIABLE BUT THERE ARE SOMETHINGS THAT WE CANT KEEP THEM LIKE THIS.ALL WE CAN DO IS LOVE THEM AND MAKE THEM HAPPY AND I BELIVE YOU DO THAT FOR ALLI.I KNOW HOW YOU FEEL ABOUT THE DOCTORS APPTS THEY SCARE ME TO DEATH BECAUSE YOU NEVER KNOW LIKE WE TOOK KATILYNN TO HAVE THAT BROCOSCOPE AND WE KNEW HER AIR WAY WAS PRETTY BAD BUT WE IN OUR LIFE WOULD HAVE THOUGHT IS WAS 90% BLOCKED OFF.BUT WE ARE SO GLAD THEY FOUND IT IN TIME.I HOPE ALL GOES WELL WITH ALLI AND THAT PLEASE TRY NOT TO WORRY SO MUCH AND I KNOW ITS EASIER SAID THEN DONE I KNOW ALL ABOUT THAT.WELL WE LOVE YOU GUYS AND I WILL BE BACK TO CHECK ON YOU ALL.I COME BY ALOT AND SOMETIMES JUST DONT GET TIME TO SIGN THE GUEST BOOK BUT I AM ALWAYS HERE.HUGS AND KISSES KATHY AND KATILYNN. BY THE WAY KATILYNN HAS A NEW LITTLE SITE SO WHEN YOU GET TIME TO CHECK IT OUT.www.freewebs.com/katilynnsmom
i made this for katilynn i have been putting her in some on line photo contest.
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, August 28, 2005 4:49 PM CDT

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Hello Miss Alli and family! I hope you guys have a wonderful day and that everything goes well with school! Sending hugs and smiles your way!
Leslie <Leslie42457@yahoo.com>
NC USA - Saturday, August 27, 2005 10:45 AM CDT

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Allison looks so grown up in her latest picture - what a pretty little school girl!
Margaret Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Saturday, August 27, 2005 9:51 AM CDT

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LOVE the new pic of Miss Alli on the front page!! She is such a doll!!! and has a beautiful smile!
From the picture it looks like she likes her teacher pretty well!! That's great!
Jennifer Deskins
www.caringbridge.org/ky/tylerdeskins, - Friday, August 26, 2005 11:00 PM CDT

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Just checking in on Allison. Wishing you guys the best.
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, UT US - Thursday, August 25, 2005 8:26 PM CDT

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I will continue to keep Allison in prayers. God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Thursday, August 25, 2005 2:03 PM CDT

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A beautiful Picture! I'm so sure she is going to enjoy her preschool.
I do know how you feel about all the news its such a rollercoaster of great and then bad news and all in one week too! Hugs Laura(mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, August 25, 2005 11:58 AM CDT

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I love the picture of Alli and her teacher, too cute!



Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, August 24, 2005 11:03 AM CDT

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Jenn - you are an amazing mom with an adorable family. I don't think any of us can truly appreciate what a "normal" day in your home entails, but I'm just a phone call away if you ever need to vent or just laugh! Keep your chin up and give Alli a big hug from Mason and me!
Mindi Steckler <tmsteckler2@bis.midco.net>
Bismarck, ND USA - Wednesday, August 24, 2005 8:59 AM CDT

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Allison looks as cute as always. I am glad to hear that she continues to do well. Take care and God bless.
Maria Tuckett <maria.tuckett@jetblue.com>
Murray, Ut Us - Tuesday, August 23, 2005 2:56 AM CDT

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Hope all went well with the testing. Allison looks beautiful! Love, The Ramsey's
sam and nancy www.caringbridge.com/co/nolanramsey <samdramsey@comcast.net>
Erie, Co - Monday, August 22, 2005 11:19 AM CDT

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Love the slide show and song. Great site. Hope all the test went well...We go for test next week in Ohio.....
www.caringbridge.org/visit/liamhilferty

She is so cute.....
Kathleen <twins82000@aol.com>
chadds Ford, PA USA - Wednesday, August 17, 2005 8:56 PM CDT

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(THIS IS IN HONOR OF ELVIS' DEATH TODAY)

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, August 17, 2005 11:11 AM CDT

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Welcome back home! I know it was a long five days but relax and just take one thing at a time to get done at home. I'm sure you are tired Jenn, so take it as it comes!!
Hugs to All!!
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, August 17, 2005 4:37 AM CDT

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I love the pic. of her on the slide she looks very scared I dont like those slides they turn the tummy and I HATE that feeling. I cant wait to see you guys in October for the Walk/Run I cant wait Tell Ashley she has a job with me!!!
Sammie
La Verne, CA USA - Tuesday, August 16, 2005 11:34 PM CDT

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I LOVE the picture of you Ali on the Carosel! You are the cutest little thing! I will be saying prayers that all of your test go well! I hope and pray that I get to meet you in person someday!!
Kaitybug's Aunt Rhonda <rjapril@insighbb.com>
Jeffersonville , IN - Saturday, August 13, 2005 10:10 AM CDT

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I got to talk to Alli tonight and she sounded so chipper!! Long day of tests, I know, but Alli sounded better than Mom. Get you rest everyone and have a fun weekend...you go back at it on Monday.
Hugs to All, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, August 12, 2005 9:23 PM CDT

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Checking out the daily schedule...I bet you are all tired! Talked to Jessica today and she was in the Cities ready for duty with Ashley tomorrow. Hang in the Jenn. I'm thinking of you all!!

Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, August 11, 2005 6:27 PM CDT

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Thinking of you today and hoping all the appointments went well for the day!!!
Big Hugs to Miss Smiley!!! You sweet little pumpkin!!! :0))

Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <jhrufus@aol.com>
Syracuse, ny usa - Thursday, August 11, 2005 3:48 PM CDT

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I hope all the appointments go well!! I will be sure to add an extra prayer for Alli on Friday!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, August 11, 2005 9:21 AM CDT

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Alli, Alli, Alli, I think of you each moment. I wish I could take some of those tears and fears away for you and your Mom. know that I am with you all. Call me anytime.

Love YOU Lots, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, August 10, 2005 9:08 PM CDT

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Just stopped by your website to see how miss allison has been doing since I last saw her. I pray all goes well with your upcoming clinic appointments. Be safe in your travels and God bless!
Wendy Kaiser
Bismarck, ND usa - Tuesday, August 9, 2005 6:49 PM CDT

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WOW ALLI!!! What a great picture on the Carousel! It looks like you had a wondeful time! I hope all you appontments go well this week! I'll be praying!
(((HUGS)))
Patty and Jesse
Jesse
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Monday, August 8, 2005 5:57 PM CDT

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Good Luck with all your appointments. I just love all the new photos. Keep them coming!!
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Monday, August 8, 2005 2:52 AM CDT

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Hey there!
Good to see your pictures and hear you are scheduled for all your appts. We will continue to pray for all of you guys as you travel to the cities. Chuck E Cheese looks like a lot of fun!
Rachel Cremer
Rachel Cremer <jridcremer@yahoo.com>
- Saturday, August 6, 2005 9:54 PM CDT

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Oh my Darling Girls! How I miss you!!! I just sent your Mom the pictures I took of us all. How much fun can we have in one weekend???? I love you all!!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, August 3, 2005 7:41 PM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, August 3, 2005 7:21 PM CDT

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Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, July 30, 2005 1:02 PM CDT

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Yikes, I will now stop complaining about the rain.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Saturday, July 30, 2005 6:47 AM CDT

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Hey Alli,

I thought I'd send you this BIG BEACH PICKLE!! I know it's not a pool toy, but hopefully he will make you laugh while you're getting new toys after the hail!



Hugs to you!!
Patty and Jesse
Jesse
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Thursday, July 28, 2005 6:40 PM CDT

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Allison looks cute as always. Her pictures show how happy she is. She looks great. God Bless
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, UT us - Thursday, July 28, 2005 2:21 AM CDT

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Hi Girls...I am counting the days till I see you all....are you?

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Monday, July 25, 2005 11:58 AM CDT

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Alli is so cute. The slide show was amazing.
Stephanie Geist <Geist6@aol.com>
Gulfport, MS US - Monday, July 25, 2005 11:35 AM CDT

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I had never heard of this disease until a couple of months ago. I'm going to send this to everyone that I know.
Megan Geist <GeistMeg@aol.com>
Gulfport, MS United States - Monday, July 25, 2005 11:26 AM CDT

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Hi Girls, See you all very, very soon!!!!
Hugs, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, July 24, 2005 8:38 PM CDT

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Hi Alli,

Just stopping by to say that I hope you have a wonderful weekend!



Alicia, John, Ciara, ,Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, July 23, 2005 5:50 PM CDT

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That is an awesome slideshow. How does Tami do that? I'd love one for my son - maybe she can teach us?
Alli is very sweet. Best of luck.
Carolynne Getchell <cgetchel@sover.net>
Brattleboro, VT USA - Friday, July 22, 2005 1:23 PM CDT

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Hey there Jenn, Ashley, and Miss Allison,
Loved the slide show! That was cute. Congrats on infusions on your own. Glad to hear that things are going well. Melanie says to tell the girls "hi" Won't get to CA this Fall, but hope to get to the conference. Are you going? Take care. We hope to see ya this fall!
The Landons
Jennifer Landon <fjlandon@centurytel.net>
Montesano, WA USA - Thursday, July 21, 2005 10:30 PM CDT

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Love the website. Beauty of girls you have....
And thanks for sharing on the meds being introduced. I am a new mom to an MPS child. Still waiting on the skin biospy;s . Thanks for signing my quest book. And congrates on being on your own with the infusion. Us Moms and Dads would do anyhting for our babies to make life better for them. Keeping all of you in my prayers.
http://www.caringbridge.org/visit/liamhiflerty

Kathleen Hilferty <twins82000@aol.com>
Chadds Ford, PA USa - Thursday, July 21, 2005 11:02 AM CDT

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Love the website, Jennifer! The girls are beautiful and look so happy. Also, what a doll Tami was to honor Alli's 2year celebration. The slide show is precious.
Carolyn's web is http://www.caringbridge.org/visit/carolyn
Pam Faust <fausthouse@sbcglobal.net>
la mesa, ca USA - Thursday, July 21, 2005 0:29 AM CDT

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McDowell Dam sure looks like lots of fun. Jen I can't believe you're already doing the infusion yourself-that's great!! Hope you're all having a great summer.

Dana
Dana Beck <dnd@bis.midco.net>
BISMARCK, ND US - Wednesday, July 20, 2005 9:18 PM CDT

---

HAPPY BIRTHDAY ASHLEY!!!!
HOpe you are having a fun day sweatheart!!
Hi to mom too!!!
Love,
The Haggett's
Brenda Haggett mom to Zach ML III <jhrufus@aol.com>
Syracuse, ny usa - Tuesday, July 19, 2005 10:40 AM CDT

---

hi guys
love the new pictures they r just so cute.i am so glad that the erts are going great and that u are giving them to her.keep up the great work guys be back to check in soon.hugs and kisses kathy and katilynn
kathy ans katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, July 19, 2005 0:24 AM CDT

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Happy Birthday to my two digit Granddaughter!!!!! 10 years old in two days....I'm counting Ashley!!
Alli, I put a present into the mail for you last week...think Strawberry Shortcake!! :-)
Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, July 17, 2005 9:55 PM CDT

---

Alicia , John, Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <mps3mom@hotmail.com>
- Friday, July 15, 2005 10:16 AM CDT

---

Looks like you guys had lots of fun swimming!!! The girls are so beautiful!!! I'm glad they are having a fun summer!! Alli is cute as a button!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, July 14, 2005 11:13 PM CDT

---

WOW!!! Love the swimming pictures....way to go girls! Swimming like old pros!!!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, July 14, 2005 10:14 AM CDT

---

Hello Jennifer & Allie
I love your website
Allie has got so grown up my thoughts and prayers are with
her and your family
Michelle Hoffner/Gateway Receptionist :) <mhoffner@primecare.org>
Bismarck, ND - Monday, July 11, 2005 3:41 PM CDT

---

Hi Girls...Ashley, I sent your present...Alli, one will be coming for you soon. I'll see you all soon!! Jenn, do you want to meet in Fargo Friday-Sunday. The girls can swim and Jess won't have to drive so far?????

Hugs, and Hugs!! Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, July 10, 2005 9:55 PM CDT

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OMG how cute are the new pictures! Jenn I'm dying! Alli's hair is getting so long and just... lock up Ashley right now! Holy Buckets to cute girls! Jim's going to kill so boy really soon! LOLOLOLOL

Love and Hugs
Tami <TLSlawson@aol.com>
- Saturday, July 9, 2005 7:31 PM CDT

---

Hi Allison!
I'm glad you had a great time on 4th of july!
I just stopped by to let you know I've been here c",)

Love from Vibeke



Vibekes Journal
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, - Saturday, July 9, 2005 1:47 PM CDT

---

Hi ,

It looks like you had a great time on the 4th of July!




Alicia , John, Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Thursday, July 7, 2005 10:33 PM CDT

---

I see those sparklers and those sparklie eyes! It's a match!!
I am sending your birthday present today Ashley!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, July 7, 2005 1:11 PM CDT

---

We started the soy extract almost a week ago and seem to be seeing some improvements already with Isabel. I pray this genistein will cross the BBB and make a difference in so many lives. Thanks for visiting Isabel's site. God bless little Allison and Ashley.
caringbridge.org/sc/isabel
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC USA - Thursday, July 7, 2005 12:32 AM CDT

---

Hi Alli and Ashley! It was great talking to you today! Thanks Jenn for the call to find out how we "weathered" the tropical storm....hurricane to hit this weekend!!!!

Hugs and kissed, Love Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, July 6, 2005 5:58 PM CDT

---

To My little Red, White, and Blue Girls!! I hope the day was fun for you all!!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, July 5, 2005 7:53 PM CDT

---

Hi Allison and Family! We just wanted to wish you a Happy 4th of July! Hope all is well!
Paul and Max Forand <Forandkerrigan@comcast.net (www.caringbridge.org/nj/maxforand)>
- Sunday, July 3, 2005 7:23 PM CDT

---

ANDREW'S WORLD

Paulina and Andrew Jump MPS III B <caljump@msn.com >
SPARTA, KY USA - Sunday, July 3, 2005 2:31 PM CDT

---

Praying all is well!
Patty and Jesse!
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Sunday, July 3, 2005 8:21 AM CDT

---

Happy 4th of July Restemayer's! I miss you all.

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, July 2, 2005 9:48 PM CDT

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Saturday, July 2, 2005 6:48 PM CDT

---

Hi Allison. Just wanted to stop by and say Hi. I just love your swim suit. Tie-dye is my favorite. You're such a cutie.

Hugs~
Casey S. caringbridge.org/oh/shafferfamily <nannaoftwo@aol.com>
Youngstown, OH - Friday, July 1, 2005 7:33 PM CDT

---

I'm so glad that Alli is doing so good with her ERT!!! She is such a little doll baby!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, June 30, 2005 11:36 PM CDT

---

Jenn, It sounds like your are turning into a mother nurse!! Good for YOU!!!!! How nice it will be to be in control of when that infusion goes down. You must have some of your Nana in you to be able to do that stick!!

Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, June 30, 2005 8:43 PM CDT

---

Thanks for the cool aid Ally! If you ever get to Ione, I'll give you a ride on one of our fire engines. You'll even get to work the siren!
John Bennett <john_95640@hotmail.com>
Ione, CA USA - Tuesday, June 28, 2005 11:31 PM CDT

---

Hi Baby Dolls!!!

Love, Your Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, June 28, 2005 6:43 PM CDT

---

Thank you so much for the

Hunter found the and when Ig ot up this morning he had chocolate all over his face.

He also had some this afternoon!
Alicia , Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Tuesday, June 28, 2005 6:03 PM CDT

---

WE JUST STOP BY TO CHECK ON YOU GUYS.I HAVE A GREAT WEEK.HUGS AND KISSES KATHY AND KATILYNN PRESTON.www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, June 27, 2005 2:54 PM CDT

---

Another beautiful day here in MS. We golfed in a tournament today with John's friend and his wife. Fun time but no "burning scores"!!
Thinking of you all.

Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, June 26, 2005 6:57 PM CDT

---

How's the slip & slide girls????

Hugs to All, Love Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, June 24, 2005 6:07 PM CDT

---

I had the cutest phone call last night from Alli and Ashley (Jenn too of course!) That Alli and her "oh man!". What a doll! Ashley had lots to say too. Talking girls..how I miss them!!! Have another good day girls!!

Hugs and kisses! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, June 22, 2005 1:06 PM CDT

---

As always. She is very cute. Glad to hear that she continues to do well. God Bless and best wishes always.
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, UT US - Tuesday, June 21, 2005 2:04 AM CDT

---

The new pics are very nice, and yes NO news is GOOD news! Praise God for all things going well!

Patty and Jesse
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Monday, June 20, 2005 8:36 PM CDT

---

You are an old pro now, Jenn! Love the new summer pics! Those girls sure are having a great time! I miss being a kid! :)
Love, Lisa Post <LMPOST@cox.net>
- Monday, June 20, 2005 7:33 PM CDT

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HI GUYS
I LOVE THE NEW PICTURES.ALI IS HAVING A GREAT TIME THIS SUMMER ITS LOOKS LIKE.YOU ARE GETTING SO BIG.I WILL BE BACK TO CHECK ON YOU.HUGS AND KISSES KATHY AND KATILYNN PRESTON.www.caringbridge.org/ky/katilynnsmom
KATHY PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Monday, June 20, 2005 11:14 AM CDT

---

Happy Father's Day Jim! Hope those girls made your day!!

Love, Janelle
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, June 19, 2005 9:27 PM CDT

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net>
- Sunday, June 19, 2005 10:55 AM CDT

---

I love the new pictures! It seems to me that Allison are doing great, and thats good!

Hugs from Vibeke

Vibekes Journal
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Saturday, June 18, 2005 10:08 AM CDT

---

The new pictures are SOO cute!!! They look like they are having so much fun running around in their little bathing suits in the sun!! ENJOY!! I am glad that Alli is doing so good!!! She is such a cutie!!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Friday, June 17, 2005 9:42 PM CDT

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WOW! What bathing Beauties!!!!! Cute pictures Jenn. I love you Alli!!!!

Love your Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, June 17, 2005 8:25 PM CDT

---

hi alli and jen
just wanted to stop by and check on you guys and i am glad that alli is doing good.i will be back to check on you all.hugs and kisses kathy and katilynn.www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Wednesday, June 15, 2005 3:37 PM CDT

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Hello, Allison; \\My grand daughter has to go to the hospital just like you do. I see how brave and strong you are. Thanks for the inspiration, Allison. Your mom talked to my daughter< Lynn, in Long Beach and told her about your website. I like it.
Helen M. Allison
San Diego, CA USA - Wednesday, June 15, 2005 0:10 AM CDT

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Thank you guys so much for the card you sent for Tyler!!!!! It is so awesome that you guys thought about us!! THANK YOU!!! I'm glad to hear that you are doing good!! You are such a cutie pie!!!
love, Jennifer and Tyler (www.caringbridge.org/ky/tylerdeskins) <tylersmommy11304@yahoo.com>
Georgetown, KY - Tuesday, June 14, 2005 9:33 PM CDT

---

Hi Alli,

I so glad you are doing better from that nasty respiratiry infection. I will keep you in prayer as always. You are such a blessed young lady! ((((Big Hugs)))

Patty and Jesse
Jesse's Page
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Friday, June 10, 2005 7:39 AM CDT

---

My what long hair you have Alli! Your picture makes me want to just pull you out of the computer to hug and kiss you!
Way to go Jenn on accessing the port...scary I bet!
I'll call this weekend when Jessica is here.
Love to All!!
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, June 10, 2005 6:24 AM CDT

---

Hi All, Jessica is coming to Mississippi on Friday! Can't wait!!!! Hugs to All, Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, June 8, 2005 9:06 PM CDT

---

Hi Babes! Lois is here and we are having a ball! Nothing like a girlfriend!!! Hugs to All!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, June 3, 2005 8:58 PM CDT

---

we just stop back in to say hello and hope that you have a great weekend.hugs and kisses kathy and katilynn.www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, June 2, 2005 6:11 PM CDT

---

Just checking in on Alli. Hope you all had a great Memorial day. As always wishing you the best.
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, Ut US - Wednesday, June 1, 2005 3:24 AM CDT

---

congrats ali on the 2 years of enzmye way to go.ali we hope that you feel better soon so you can get out side and play.we will check back on you soon hugs and kisses kathy and katilynn.www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, May 31, 2005 10:06 AM CDT

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Monday, May 30, 2005 11:24 PM CDT

---

Hi Jenn, You must be busy!!!!! I know how those daycares can get to be BUSY! Hugs to All,
Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Monday, May 30, 2005 10:11 PM CDT

---

Rain storm here today. Wow! lightening right down to the ground and tons of rain! Not like ND rain!!
Hugs to All!! Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Monday, May 30, 2005 0:04 AM CDT

---

Hi all, Love Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, May 29, 2005 7:51 PM CDT

---

Hi Babes! Sunny and hot here...time for more ice cream! Working really hard...miss you all!!

Hugs, and kisses!
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, May 28, 2005 8:08 PM CDT

---

I was watching American Idol and thought of Alli so I checked the website. I loved the slideshow! I rented the Lizzie Maquire movie the last time I was there and my girls loved it. I will keep checking on Alli and I hope she is feeling better.
Dana <dnd@bis.midco.net>
BISMARCK, ND - Wednesday, May 25, 2005 8:50 PM CDT

---

A special thank you to Jennifer for giving me a call so quickly as word travelled through friendship and a special MPS network that I would appreciate talking to someone in a simliar situation as my family. We have a daughter, Michelle Allison (14 months) that has been recently diagnosed with MPS1. We are starting our journey with MPS1 and the wonders of modern medicine. I very much appreciated the time and support Jennifer was already able to share. God bless your family. Lynn Hopkins
Lynn Hopkins <hopper4@aol.com>
Long Beach, CA USA - Tuesday, May 24, 2005 10:36 PM CDT

---

Hi Allison-
I popped in from your friend Katilynn's site to visit. Congrats on 2 years of infusions! That IS a big milestone. Your slide show was precious- what a beautiful young lady you are!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Tuesday, May 24, 2005 3:11 PM CDT

---

As always she is sooo cute. Loved her video. Congrats on her 2 years.
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, Ut US - Monday, May 23, 2005 1:29 AM CDT

---

Congratulations on your 2 year anniversary Allison! We saw the beautiful video (sent over by Kym Wigglesworth). It brought tears to my eyes to see the amazing progress that you have made. Please know so many think of you and pray that all continues to go well. One day at a time! Wishing you a healthy and peace-filled Summer!
Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Sunday, May 22, 2005 8:26 PM CDT

---

Hi Girls and Jim, BUSY with the ice cream store! Come on down for free ice cream!!!!
XXOO, love Nana

no more shots for that Baby Girl! Hope all is getting better!
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, May 21, 2005 12:07 AM CDT

---

I loved the slideshow! I hope Ali is feeling better soon! I loved the 2 year anniversary party idea, but....puppy chow?...you HAVE got to explain that one!! :)
Love, Lisa Post <LMPOST@cox.net>
- Saturday, May 21, 2005 6:06 AM CDT

---

Hey guys!!

The slide show was awesome!!! Alli seems to get cuter every time we see her. We're so glad things are going so well. Max is doing great too. Love that Aldurazyme!! Talk to ya soon!!
Paul & Max Forand <forandkerrigan@comcast.net>
Millville, NJ - Thursday, May 19, 2005 8:35 PM CDT

---

HOpe everyone is feeling better this week! Looking forward to the slide show!
Lisa Post <LMPOST@cox.net>
- Thursday, May 19, 2005 4:28 PM CDT

---

Just stopping by to say "HI"!! The slide-show was WONDERFUL!! Alli is such a beautiful little girl!!
Jennifer Deskins *(www.caringbridge.org/ky/tylerdeskins)* <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, May 19, 2005 12:24 AM CDT

---

just drop by to see how Allison doing. Love the new pictures. My prayers are always with you.
((BIG HUG))

www.helpourgirls.com
Tayyaba Beg <Tayyaba@helpourgirls.com>
NJ - Wednesday, May 18, 2005 4:55 PM CDT

---

Allison looks great. Two years! Wow, I have a hard time remembering it has been two years since Nolan transplanted. Celebrate tomorrow and the progress Allison has made!! Way to go!
Love, Nolan and His Mommy
Nancy www.caringbridge.org/co/nolanramsey <samdramsey@comcast.net>
Erie, Co - Tuesday, May 17, 2005 11:23 PM CDT

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I will pray for Allison and put her name on the prayer chain at my church. God bless Allison and her family and friends. God guide her doctors.
Jerry Ingraham <jerrypingraham@wmconnect.com>
7437 Mahalo Hui Dr., MS USA - Tuesday, May 17, 2005 6:37 PM CDT

---

Wonderful video Jenn. TX to Tami!

Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, May 17, 2005 1:48 PM CDT

---

Wow! Hard to believe it's going to be 2 years tomorrow. I've faithfully been checking Alli's website and can't believe how fast those 2 years have gone by. Congratulations! God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Tuesday, May 17, 2005 11:46 AM CDT

---

I love the new picture! I also made some more "girly" backgrounds for Alli so I am happy that you are using them! Let me know if there is something specific that you would like for a background!
Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Sunday, May 15, 2005 5:59 PM CDT

---

Alli -does look so well in the photo -I hope the chest infection has cleared -We have it here too!! love and Hugs Laura(mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, May 15, 2005 4:42 PM CDT

---

Hi Alli, You look so big!!!! I miss you and I love you!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, May 14, 2005 10:08 PM CDT

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Hi Jennifer,
I think of all of you often. Allison looks great! I love the pictures of your girls. Hope you had a good Mother's Day, and that all of you are feeling better. God bless all of you... we hope to meet you one day soon. With love,
Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Friday, May 13, 2005 9:49 PM CDT

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Allison looks just great! I sure like the pictures of the girls - both are growing so fast! I too am shocked that 2 years have already gone by. Hang on ... I have a feeling this fast ride called life is quickly moving us on.:) I been thinking and praying for all of you
Love, Rachel
Rachel Cremer <jridcremer@yahoo.com>
Hot Springs, MT USA - Friday, May 13, 2005 9:21 PM CDT

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Alli looks great. Hope you had a great Mother's Day
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, ut us - Wednesday, May 11, 2005 3:05 AM CDT

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Hi Pet, missing you!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Monday, May 9, 2005 8:56 PM CDT

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I loved the pictures! Allison looks great! I had heard from Kym W. how well she is doing!
Trisha Jensen - Sydnee with MPS1 <trishajensen@ev1.net>
Grapeland, TX - Monday, May 9, 2005 10:54 AM CDT

---

Happy Mother's Day
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, May 8, 2005 3:12 AM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Saturday, May 7, 2005 10:58 PM CDT

---

Hi Alli, Nice talking to you today! I miss you.
Happy MOther's Day Jenn!!

Love to You All
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, May 6, 2005 1:46 PM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Thursday, May 5, 2005 4:40 PM CDT

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Hi All, Can't sleep tonight so I thought I'd check out the new pictures of my Babes again! Cute as ever!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Wednesday, May 4, 2005 3:52 AM CDT

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AHHH! I just love the picture through the slide! How cute! And I also love the fact that Alli is doing so well and just being a kid at the park!!
Congrats on infusion100!
Love, Cathy <jacon@shaw.ca www.caringbridge.org/canada/isobel>
- Tuesday, May 3, 2005 9:18 PM CDT

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Dear Alli,
You just keep getting cuter and cuter! May today give you many, many reasons to smile.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Tuesday, May 3, 2005 11:52 AM CDT

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Hi Sweetheart! I am just checKing to see how fast you are growing! I miss you.

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, April 30, 2005 8:06 PM CDT

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Just thought I would stop in to say "hi"!!! Alli is SOOOO precious!! What a doll!!!
I'm so glad to hear her infusions are going good!! YEAH!
Jennifer Deskins **(www.caringbridge.org/ky/tylerdeskins)** <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, April 28, 2005 10:21 PM CDT

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Alli,
Spending the afternoon checking different MPS websites and wanted to check in on you. Your "Nana" sends me emails/messages often. The picture on your home page is great! I'm glad your infusions are going well. Hugs to you from Madison and I.
Mom to Madison (www.caringbridge.org/nc/madisonlewis)
Paige Lewis <paigel@purolatorair.com>
Middlesex, NC USA - Thursday, April 28, 2005 2:06 PM CDT

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Alli looks more adorable in every picture you post. Glad the infusions are going well. Really, if you ever have any questions about anything or just want to talk, please let me know.
Paul and Max Forand
- Tuesday, April 26, 2005 10:56 PM CDT

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Alli, Alli, Alli, you look so BIG!!!!! I'm so proud of you!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Tuesday, April 26, 2005 7:50 PM CDT

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Wow Allison is such a cutie. She looks so good. Sending positive thoughts your way.
Maria Tuckett <Maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett/>
Murray, Ut US - Monday, April 25, 2005 1:23 AM CDT

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What baby DollS!!!!!!! Very cute pictures. I want more!!!
hugs, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Sunday, April 24, 2005 8:32 PM CDT

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I just loved the new pictures of Allison and Ashley. You both are very cute and sweet.

Hugs from Vibeke
www2.caringbridge.org/europe/vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Sunday, April 24, 2005 1:52 PM CDT

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Hi Girls, I miss you and Love you!!!

Hugs, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, April 23, 2005 6:36 PM CDT

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Hey Babes, We went to the beaches in Flordia today. So very nice. Can't wait till you all can come and see it for yourselves!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, April 21, 2005 9:15 PM CDT

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HI GUYS
I AM SO GLAD THAT THE HEARING APPT WENT WELL.KATILYNN HAS A HEARING TEST APPT MAY THE 6TH AND THEY ARE PUTTING HER TO SLEEP AND THEY ARE ALSO DOING A BRONCSCOPE TO CHECK HER AIR WAY SO HOPFULLY THAT GOES WELL.I AM ALSO HAPPY THAT YOU HOME TREATMENTS ARE DOING GREAT.I WILL BE BACK TO CHECK IN ON YOU ALL SOON.HUGS AND KISSES KATHY AND KATILYNN
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
tomahawk, KY USA - Saturday, April 16, 2005 6:07 PM CDT

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Hope everything is just fine, I just want to say hello to cutie Allison!
This is for you:

Hugs from Vibeke
http://www2.caringbridge.org/europe/vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Saturday, April 16, 2005 3:40 PM CDT

---

What great news about Allie's ears. I'm sure that was a big relief.
Love, Rachel
Rachel Cremer <jrcremer@hotsprgs.net>
Hot Springs, MT USA - Thursday, April 14, 2005 10:57 AM CDT

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Hey Beautiful Granddaughters! I am now gathering together the presents I have for you. I will give them to Aunt Jessica and she will deliver them to you the next time she sees you!! Check in the card to see who gets what. I Love You.

hugs and kisses, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Saturday, April 9, 2005 3:33 PM CDT

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Hey you Guys!

So sorry to hear you have been struggling with this virus. Its hard on both Alli and on Mom and Dad I'm sure. We are praying for health and strength for all of you. I sure love the pictures of Ashley and Allison. They are beautiful.

Love, Rachel
Rachel Cremer <jridcremer@yahoo.com>
Hot Springs, Montana USA - Saturday, April 9, 2005 3:12 PM CDT

---

I hope you feel better soon sweetie.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Friday, April 8, 2005 1:27 AM CDT

---

HI ALI AND JENN
KATILYNN IS ALSO HAVING TROUBLE HEARING AND WE ARE TRYING TO GET HER A APPT TO HAVE HER HEARING CHECKED AND I DONT THINK IT WILL BE GOOD WHEN THEY DO IT U CAN STAND AND HOLLAR AT KATILYNN AND IT SEEMS SHE DONT HEAR ME UNTILL I STOMP ON THE FLOOR SO I DONT KNOW IM WORRIED.BUT I HOPE THAT ALI GETS WELL SOON AND I WILL BE BACK TO CHECK ON HER.HUGS AND KISSES KATHY AND KATILYNN
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
tomahawk, ky USA - Thursday, April 7, 2005 2:49 PM CDT

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Hi Babe, It's hard when a child is sick. I know you are so busy!!!! Hugs to all. I'll be seeing Jessica next week along with my brother Jeff. We'll all check in with you when we are all together.

Love, Mom
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, April 7, 2005 12:02 AM CDT

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What precious and beautiful pictures. Love and hugs to you...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Tuesday, April 5, 2005 2:12 PM CDT

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HI GIRLS
LOVE THE NEW PICTURES AND GREAT JOB ALI ON THE HOME TREATMENTS WAY TO GO.WE ARE GLAD THAT YOU ARE DOING SO WELL.WE WILL BE BACK TO CHECK ON YOU ALL SOON.HUGS AND KISSES KATHY AND KATILYNN www.caringbridge.org/ky/katilynnsmom
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
tomahawk, KY USA - Sunday, April 3, 2005 5:40 PM CDT

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Hi Dolls! I have another beautiful day here in Mississippi. Did you get my picture of our house?
Sunshine heading your way!!

Love, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Friday, April 1, 2005 3:20 PM CST

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Hi Again, As I go through the caringbridge contacts I have made my thoughts always go back you Alli, my sweet one. I get such urges to hug you that I actually ache. So here's a HUGE HUG from me to you!!

Love You, Nana
Janelle Kunellis <janellekunellis@yahoo.com>
- Thursday, March 31, 2005 8:00 AM CST

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Hi Alli, Your Nana sends you all her love this morning. I miss you!!

Hugs and kisses, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, March 31, 2005 7:47 AM CST

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Happy Anniversary!! Alli looks so good. I love her Easter pictures. Both girls are so cute. Doing the infusions at home must be easier on Alli as well as you. Hope you had a great Easter Holiday.
Maria Tuckett <maria.tuckett@jetblue.com>
Murray, Ut US - Thursday, March 31, 2005 2:39 AM CST

---

Hi Dolls! Just checking to see your pictures again and again!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, March 29, 2005 6:28 PM CST

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I'm a lucky grandpa, you girls are beautiful. Sorry I couldn't make it for Easter, but with the cold I didn't want to make anyone else sick. Can't wait to see you. Hope it is soon. Love Grandpa
Chris <cpmyrold@aol.com>
Moorhead, MN USA - Tuesday, March 29, 2005 11:46 AM CST

---

Happy Easter to my favorite bunnies!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, March 26, 2005 11:22 PM CST

---

HAPPY EASTER!!!

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Saturday, March 26, 2005 7:35 PM CST

---

HAPPY EASTER
ANDREW'S WORLD
Paulina and Andrew Jump MPS III B <caljump@msn.com >
Sparta, Ky USA - Saturday, March 26, 2005 10:14 AM CST

---

Happy Anniversary! Jenn and Jim! Your girls look beautiful! I'm so glad things are going well for all of you. Happy Easter!
Love, Rachel
Rachel Cremer <jridcremer@yahoo.com>
Hot Springs, MT - Saturday, March 26, 2005 9:55 AM CST

---

JEN!!!!!! When did her beautiful hair get so long!! Both girls look just perfect! Holy Buckets? When did they get so big? Now I'm feeling old!

Hugs,

Tami <tlslawson@aol.com>
- Friday, March 25, 2005 10:01 PM CST

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Happy 10th Anniversary! The new pics of the girls and their little bunnies are so cute! Happy Easter to you all! Great to hear home infusions are going well!
Lisa Post <LMPOST@cox.net>
- Friday, March 25, 2005 6:40 PM CST

---

What great pictures!!! They are both getting big!! Have a Hoppy Easter!!!
Kaitybug's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville , IN - Friday, March 25, 2005 4:39 PM CST

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All the new pictures are absolutley beautiful!

Hugs and Kisses
Patty and Jesse
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Friday, March 25, 2005 4:02 PM CST

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HAPPY EASTER ALLIE!!!!! You look so pretty with that big smile of yours and that white bunny. Hope the Easter Bunny brings you lots of candy.

Love,
The Morrissey's
Nikki & Cade Morrissey <slimpikens1@yahoo.com caringbridge.org/il/cademateo>
Kewanee, Il USA - Friday, March 25, 2005 2:55 PM CST

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Have fun with Aunt Jessica!!!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, March 24, 2005 8:59 PM CST

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hi guys
happy easter
love kathy and katilynn
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Thursday, March 24, 2005 3:28 PM CST

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Happy Easter

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Thursday, March 24, 2005 1:52 AM CST

---

Hi Girls, Expect a package in the mail this week!

Hugs and kisses

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, March 21, 2005 4:54 PM CST

---

I think it's great what you do for Allie. I have always said we as parents have to whatever we have to for our kids. Tatiana qaulifies for Medicade through a waiver program here in Utah. It's called the Travis C Waiver program. She only qaulifies if she is machine the dependent which the port qaulifies her. Have a Great Easter.
Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, UT US - Monday, March 21, 2005 2:40 AM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Thursday, March 17, 2005 3:25 PM CST

---

Happy St. Paddy's Day!! All wear GREEN so no one pinches you!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, March 16, 2005 8:52 PM CST

---

Hi Alli, I thought I'd stop by and wish you a Happy St. Patrick's Day! Don't forget to wear some green!


Jess's Page
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Wednesday, March 16, 2005 6:40 PM CST

---

I hear the CUTEST song sung yesterday! Alli sang Jessica (her aunt) happy birthday on her voice mail. Jess called me to dial in to listen. Alli, Alli you sounded so sweet. What a treat!!!!!
Off to New York City to find a treat for my babies!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, March 15, 2005 7:50 AM CST

---

Stopping by to see how everything is going. Glad to see you are doing well.Hugs to everyone.
Sharon Cochenour (mom to Andrew MPS II)
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Monday, March 14, 2005 12:01 AM CST

---

I got to talk to all my girls today...Alli, Ashley, Jenn, and Jessica. I miss you all. And Alli...do not kick your sister. Ashley, Ask your Mom how it is to be the big sister when the little sister cries!!!! LOL

Love, Me
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, March 13, 2005 8:48 PM CST

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Hi All, I am so glad your kitchen is done and you like it. I expect a cake when I come and Ashley and Alli can make it for me!!
Off to rake at Church today-Spring clean-up. Have a great weekend. XXOO, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, March 12, 2005 8:33 AM CST

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Oh my gosh!!!!! the picture of Alli and your dad- Its is priceless!!!!!!!!! she is absolutely beautiful!!!!!!!!!!!!!!! Caroline wants to know where the beautiful "little " girl int he Strawberry shortcake outfit went- she says Alli is so grown up it cant be the same girl!!!!!
Kim and Caroline Downham <jdownham@earthlink.net>
Houston, TX - Saturday, March 12, 2005 0:40 AM CST

---

HI Jenn!!!
Thought I'd say HI and check in with you and the girls!!!
You're lucky or unlucky enough to be my prayer buddy this month! Honestly hope you are still speaking to me cuz Lord knows I need the prayers! LOL I'm always thinking about Miss Smiley, I just know Zachie would be elated to meet her, he LOVES the blondes!!!! LOL
I'd love to talk when you have some free time!!
Give the girls hugs for me!!
Sincerely, Brenda Haggett, ML mom <jhrufus@aol.com>
Syracuse, NY USA - Thursday, March 10, 2005 5:53 PM CST

---

Just checking in on little ms Smiley and sis Ashley! Hope everyone is doing ok! Tell mommy hello!
Kaitys Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville , IN - Wednesday, March 9, 2005 2:33 PM CST

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Hi Girls, Boy did I pick up some great gifts for girls today!!!! Such fun!! Now...when do I mail them? I know Ashley has a birthday coming up...I don't know if I can wait till July!!!? UMMMMM? Would Alli and Ashley like a present for NO REASON???

Hugs and kisses!! Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, March 8, 2005 5:49 PM CST

---

Hi All! Have a great weekend!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, March 4, 2005 10:26 PM CST

---

Alli,
Your mom did a great job!!! Jack is very proud of her. Jack wanted me to check on you and say HI. So, HI. Give your mom a big hug from us.
Kim Frye <drafrye@aol.com>
- Friday, March 4, 2005 3:27 PM CST

---

wow! I had not better write to you guys so early in the mornings!! Beads...Alli and Ashley got beads. Well, that made my laugh for the day!!! Hope all went well for the infusion this week.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, March 3, 2005 2:54 PM CST

---

I had the BEST phone call last night. Alli and Ashley got their box of New Orlean's beans!! Alli was so excited she had to tell me all about them! Calls like that make the world spin right!!! thanks Jenn!!

Love, Me
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, March 2, 2005 7:28 PM CST

---

Just checking in to say hi! I wanted to let you know that the kids keep making me look up Alli's web site just to see the Dora cake!!! They love it!
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, CA USA - Sunday, February 27, 2005 9:43 PM CST

---

Have a great weekend!! Look for a box coming this next week!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, February 26, 2005 6:04 AM CST

---

Oups! I forgot to say : Remembering you and all the other children I've come to meet or know via Caringbridge on this National MPS day. Praying for the health of your children and a permanent cure for MPS and other disorders. God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Friday, February 25, 2005 10:46 AM CST

---

Great speech. You did a great job opening their eyes. God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Friday, February 25, 2005 10:46 AM CST

---

Wow Jennifer! I am in awe. You did a wonderful job. Allison is so blessed to have you for her mommy, but all our kids are blessed to have you in their corner fighting for them!!
XXXOOO
Debbie Vanderpool <djvpool@frontiernet.net>
Rochester, NY USA - Friday, February 25, 2005 5:14 AM CST

---

Jennifer -You did an excellent Job -I'm sure your state will start to look into this now! -how could they not! if they got a pic of Miss Alli too love Laura (mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, February 24, 2005 1:38 PM CST

---

Jennifer, I as so very proud of you and your testmony! I am sure you made those elected officals much more aware. Good job!!!!!!!!!!!!!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, February 24, 2005 9:47 AM CST

---

I just wanted to let you know that when I opened your page Elliot said "look Mommy, a princess". I think Elliot has a crush! haha
Kristin Mattheson (www.caringbridge.com/nh/elliot) <krmattheson@verizon.net>
Jaffrey, NH - Thursday, February 24, 2005 8:54 AM CST

---

Great job on your testimony Jennifer! I hope it helps make prgress in your state.


Hugs and Kisses
Patty and Jesse
Jesse's Page
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Thursday, February 24, 2005 7:17 AM CST

---

It looks like everybody had a great time at the party. Of course I wasn't surprised when I saw she had a Dora cake, hehe. I am sure that Tommy was at the party too. He loved the bouncer and we could never get him out of it. He would bounce until his face was red because he hadn't had anything to drink for hours while he jumped. He was also the biggest Dora fan so I am sure he paid you all a visit!


Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Wednesday, February 23, 2005 5:52 PM CST

---

Alli,
Happy belated Birthday! It looks like you had a great time with your friends.
Big hugs,
Kym, Craig and Maddy
Kym Wigglesworth <kwigglesworth@nc.rr.com>
Apex, NC - Tuesday, February 22, 2005 7:59 PM CST

---

Hope is doing well, thinking of you Miss Allismile!

Hugs from Vibeke
www2.caringbridge.org/europe/vibeke


Vibeke <vibekehovd@hotmail.com>
skaun, Norway - Tuesday, February 22, 2005 12:30 AM CST

---

HAPPY LATE BIRTHDAY ALI YOU ARE GETTING TO BE SUCH A BIG GIRL.TELL YOUR DAD HE DID A GREAT JOB ON YOUR CAKE IT LOOKED GREAT.WELL I HOPE THAT YOUR HIPS FEEL BETTER SOON.I WILL BE BACK SOON TO CHECK IN ON YOU GUYS.LOTS OF HUGS AND KISSES KATHY AND KATILYNN
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Sunday, February 20, 2005 4:57 PM CST

---

Allison is a very smart little girl and very lucky to have such great parents who take such great care of her!
Mary Bendish
Fort Rice, ND USA - Sunday, February 20, 2005 1:54 PM CST

---

The cake looks fantastic!!! Great job, what a great husband. Happy Birthday Alli. I hope those hips are feeling better soon. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Sunday, February 20, 2005 1:13 PM CST

---

Happy late Birthday!!! The cake came out great! He's hired, he did an awsome job!!! Give Alli lots of kisses from all of us in Cali!!!
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, CA USA - Saturday, February 19, 2005 10:52 PM CST

---

Happy Birthday dear Alli! Your dad is quite the cake decorator. Glad you had a great party. God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Saturday, February 19, 2005 8:05 PM CST

---

I can't believe ANY man could decorate a cake that good! Wow...
And what a pretty fairy on the front page of Miss Allison.
Lots of love to you all from NC...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Friday, February 18, 2005 2:43 PM CST

---

What a princess! Alli, You are SOOOO cute! I just want to come through the screen to hug you and kiss you!!!!!

Great Party Jenn and Jim!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, February 18, 2005 7:50 AM CST

---

Wow That cake!!!Glad the party went well the pics are lovely!love Laura (mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, February 17, 2005 11:54 AM CST

---

Hey Alli,

I just wanted to ask "WILL YOU BE MY VALENTINE?"
Happy Valentines Day and I hope your party went well!


Hugs and Kisses
Jesse and Mom~Patty too
Jesse's Page
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Monday, February 14, 2005 7:25 PM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Monday, February 14, 2005 9:35 AM CST

---

HAPPY VALENTINE'S DAY TO ALL!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, February 14, 2005 6:42 AM CST

---

Oh My, the stories I head about the birthday party! My little Alli says she's on her way to 10 years old!!! That child just turned 4 and now she wants 5-6-7-8-9-10!

Hugs to All, Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, February 13, 2005 4:37 PM CST

---

Hi Girls, I just put my Valentine's Cards in the mail today. Hope you get them by Monday!!!
Have a great day!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, February 11, 2005 12:24 AM CST

---

Everytime I check into the website and see you standing there Alli, I want to come a pick you up..to hug and kiss! You look so cute standing there in your dress!
Hope all went well yesterday. I was thinking about you!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, February 10, 2005 12:40 AM CST

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How was your day my Love? I bet you had a wonderful time!!
Hugs to you and hugs to Ashley!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, February 6, 2005 9:54 PM CST

---

Happy Birthday Allison!!! I hope it was fabulous and that you feel all better now in time for your big day. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Sunday, February 6, 2005 5:28 PM CST

---

Happy Birthday. Hope you had a wonderful day, you deserve it!!
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, February 6, 2005 1:30 AM CST

---

HAPPY BIRTHDAY SWEET PEA!! I hope your day is as special as you! You deserve only the best and I'm sure you got all you wished for! I told Brian (Donald Duck) that it was your birthday and he sends great big hugs from Iowa, where he's working. We love you bunches!

~Jess & Brian
Angel Kaity's Site
Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Saturday, February 5, 2005 9:47 PM CST

---

HAPPY BIRTHDAY ALLI!!! You big 4 year old baby doll! I LOVE YOU!

NANA

Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, February 5, 2005 6:00 PM CST

---

Happy Birthday cutie pie!!! Hope you have a wonderful day, and get everything you want! Reilene and Nikkolas said "Haty booday!"
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, ca USA - Saturday, February 5, 2005 1:29 PM CST

---

Just stopping by to say "hi"!! Wanted you to know I am thinking about you!!

Jennifer Deskins**www.caringbridge.org/ky/tylerdeskins** <tylersmommy11304@yahoo.com>
Georgetown , KY 40324 - Friday, February 4, 2005 10:57 PM CST

---

2 more days Alli! You are such a big girl...not a baby BUT my Baby Doll!

Hugs and more hugs! Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, February 3, 2005 7:47 PM CST

---

Have a very Happy and Special 4th Birthday, Miss Alli!!!
Lisa Post <LMPOST@cox.net>
- Thursday, February 3, 2005 3:51 PM CST

---

Good to read that Ali is doing better! I hope you have you a WONDERFUL BIRTHDAY!!!
Kaitybug's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville , IN - Thursday, February 3, 2005 2:04 PM CST

---

Jenn, the new floor sounds nice. Can't wait to see it.
Happy Groundhog's Day!!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, February 2, 2005 12:33 AM CST

---

3 more days my little Baby Doll! Have you received our present yet? Can't wait to hear all about those Birthday plans!!

Love, Nana and John
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, February 2, 2005 7:43 AM CST

---

Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Wednesday, February 2, 2005 0:06 AM CST

---

four more days till my Girl is the BIG 4!!!!!!!!!!!!!!!!!

Love YOU Allison!!!! Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, February 1, 2005 9:59 PM CST

---

Someone has a BIRTHDAY COMING? I sure hope you are feeling better to celebrate!!!
Kaitybug's Aunt Rhonda <rjapril@insighbb.com>
Jeffersonville, IN - Tuesday, February 1, 2005 8:07 PM CST

---

Happy Birthday -ALMOST! Alli, have your received my present yet???

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, February 1, 2005 9:56 AM CST

---

Wow! Tomorrow is the first of FEB.....5 more days!!!!

Hugs, Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, January 31, 2005 4:42 PM CST

---

Hi Miss Alli!
I've been thinking of you, hope you feel better today!

Hugs from Vibeke (www2.caringbridge.org/europe/vibeke)
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Sunday, January 30, 2005 3:12 PM CST

---

How many days till this Babe turns 4??

Hugs and kisses!! Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, January 30, 2005 2:37 AM CST

---

Hey Baby Doll, I am thinkinG ABOUT YOU TONIGHT. I love you.

Nana
j <shoe111550@yahoo.com>
- Thursday, January 27, 2005 9:55 PM CST

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Hey Miss Alli,

Just wanted to send some prayers and ((Hugs and Kisses)) your way! I sure hope you beat that fever and nasty cough stuff soon! It's no fun feeling bad :-(

Love,
Patty and Jesse

http://www.caringbridge.org/md/myjesse/
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Thursday, January 27, 2005 1:55 PM CST

---

Hey guys,

We're so hoping that Alli was feeling better and able to get her infusion. We are so excited and happy for you guys if she was! And if she wasn't, I'm sure she will be able to soon. I'm being intentionally vague -- but I hope you know what I mean.

Thank you and your family for being a constant source of support. We are always checking in and it really means a lot when you do the same.
The Forands -- Paul, Kelly, Amanda, Max and Andrew <Forandkerrigan@comcast.net (www.caringbridge.org/nj/maxforand)>
Millville, NJ - Thursday, January 27, 2005 0:19 AM CST

---

Alli! Oh, Alli! I wrapped your present for the mail tonight! I will put it into the mail tomorrow! My 4 year old Baby Doll can open it as soon as it comes to her house.
We love you!!

Hugs and kisses, Nana and John
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, January 25, 2005 6:49 PM CST

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Hi All, I lost my MSN today so I had my favorites taken away! I am hoping to hook back up with those I wrote to by taking the caringbridge site off of notes you write here to Jenn and Alli. It might take me a while but I will get them all back. Hugs and kisses Alli...I wrapped your birthday present today!!!! Whee!!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, January 24, 2005 4:32 PM CST

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WOW! Nothing like wall papering together to make a marriage see how well it's papered!! Love those together chores!! Weather is nice here...want to send those beautiful Granddaughter's of mine down for a quick visit???

LOL Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, January 21, 2005 8:26 PM CST

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Hello everyone. Just wanted to let you know I was thinking of you guys today and everyday!!!
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, ca USA - Friday, January 21, 2005 6:40 PM CST

---

Checking in on cute little Ms Smiley!!! Too cute!!! Good Luck with the wall papering and when you are done come down and wall paper for me!!! I will take good care of Ali I promise!!!!
Kaity's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, IN - Friday, January 21, 2005 6:15 PM CST

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Checking in on Alli and loving the new pics! What a couple of gorgeous daughters!!!!
Lisa Post <LMPOST@cox.net>
- Friday, January 21, 2005 10:32 AM CST

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Dear Alli,
you are the wonderfullest, beautifullest, girl I ever saw. How are you doing? How is your sister doing? Did you get good things for Christmas? Did your sister get good presents for Christmas too? I hope so. I love your Dora dress!!! You look so pretty. Write back sometime, you can do it on Ty's webpage, or by email.
Love, Caroline, Ty, and Kim.
Caroline Downham <jdownham@earthlink.net>
Houston, - Thursday, January 20, 2005 8:39 PM CST

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Jennifer,

Thank you for the information. Its always helps to know what other parents have gone through and any information they can share. Allison is such a cutie. Best wishes always.
Maria Tuckett <mariatuckett@comcast.net;caringbridge.org/ut/tuckett>
Murray, ut us - Wednesday, January 19, 2005 10:04 PM CST

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Love the new pics, thanks for the update-link, Janelle. The girls look great in their matching wavey hair! Hope all is going well,

-jb
John Bennett <jb3_42@hotmail.com>
- Tuesday, January 18, 2005 11:47 PM CST

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Hi Girls and Jim, Back from AZ and trying to recover! Those plane flights are something else!! Have a good week and I will be calling soon.
Hugs and kisses Alli!!! and Ashley!!!

Love, Nana and John
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, January 17, 2005 9:08 PM CST

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Hi Jenn,
I was just checking in on your beautiful girls and wondering how you all are doing!
The pictures are sooo cute!!! I can't believe you had a sleepover, at three! I was such a baby I could only sleep at my grams and I think I was like 7!! LOL Glad they had fun and glad the treatment went well! Hope you have a great week!! Love and prayers,
Sincerely, Brenda Haggett, ML mom <jhrufus@aol.com>
Syracuse, NY USA - Sunday, January 16, 2005 2:14 PM CST

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Hi!
Hope Allison are just fine! Just stopped by to say that I'm thinking of you.
Hope your sleepover was just great.
Big hug from Vibeke (www2.caringbridge.org/europe/vibeke)
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Saturday, January 15, 2005 3:10 PM CST

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A sleepover how cool. I hope you had fun! Sorry to hear about your fall. Thinking and praying for you and your family.

Andrew’s Journal
Paulina Jump and Andrew Jump MPS IIIB <caljump@msn.com >
Sparta, Ky USA - Saturday, January 15, 2005 11:22 AM CST

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What a cute picture! Just checking in on little ms Smiley!!! So good to hear that she is doing well!
Kaitybug's Aunt Rhonda (from the MPS Forum) <rjapril!@insightbb.com>
Jeffersonville , IN - Friday, January 14, 2005 6:13 PM CST

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Hi Alli, I am wrapping your Birthday present. John and I both decided that it was the perfect gift for a 4 year old! Can't wait till the BIG DAY!

Love, Nana and John
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, January 12, 2005 9:42 PM CST

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Allison you are growing so fast, a sleepover sounds like great fun. The photos, as always, are lovely.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Wednesday, January 12, 2005 2:12 AM CST

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NO!!! Not a sleepover at age 3...this babydoll is growing up too fast! I bet she had a ball!!
TOY!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, January 11, 2005 6:04 PM CST

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Hi Baby Doll. I love you!!

Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, January 9, 2005 10:30 PM CST

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Hello, I was sitting here thinking of Alli. I hope you had a wonderful New Year! Give Alli a big hug and kiss from all of us!
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, ca USA - Thursday, January 6, 2005 11:53 PM CST

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HI ALI AND FAMILY JUST WANTED TO STOP BY AND CHECK IN ON YOU GUYS HOPE THE NEW YEAR HAS BEEN GREAT SO FAR.I WILL BE BACK TO CHECK IN ON YOU ALL LATER LOVE KATHY AND KATILYNN PRESTON
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHWK, KY USA - Wednesday, January 5, 2005 7:56 PM CST

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Dear Alli & Family
Sending prayers and wishes for a safe, healthy and happy 2005 from all of us over here at Bridge of Dreams, www.bridgeofdreams.org . May your New Year be filled with love, laughter and lots and lots of smiles!
Blessingz & Big Huggerz,
Melissa
Melissa <myss911@juno.com>
Lancaster, CA USA - Monday, January 3, 2005 10:56 AM CST

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Glad to hear you had a good Christmas. Hope the New Year is full of peace and happiness.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Saturday, January 1, 2005 5:01 PM CST

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Hope you had a Merry Christmas! Happy New Year!
Robin Piefer (www.caringbridge.org/pa/logan) <robin.h.piefer@verizon.net>
Philadelphia, PA - Saturday, January 1, 2005 3:23 PM CST

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HELLO ALI AND FAMILY
HOPE YOU HAVE A HEALTH AND HAPPY NEW YEAR
LOVE KATHY AND KATILYNN
KATHY AND KATILYNN <katilynnsmom@yahoo.com>
- Friday, December 31, 2004 9:20 PM CST

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Happy New Year!!!!!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, December 31, 2004 4:36 PM CST

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Friday, December 31, 2004 12:22 AM CST

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Sounds like you all had a great Christmas! Hope you have a healthy and happy New Year too!
Kimberly Frye <drafrye@aol.com>
La Crescenta, ca - Tuesday, December 28, 2004 9:24 PM CST

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HELLO GUYS
HAVE A MERRY CHRISTMAS AND A HEALTH AND HAPPY NEW YEAR
LOVE KATHY AND KATILYNN
KATHY AND KATILYNN <katilynnsmom@yahoo.com>
- Monday, December 27, 2004 1:29 AM CST

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Merry Christmas Alli and family!! I hope you had lots of wonderful surprises from Santa! I loved your beautiful dresses!!
Love,
Kim and Ty Downham <jdownham@earthlink.net>
Houston, - Saturday, December 25, 2004 2:58 PM CST

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Hi to All, What a great update!! Can't wait to see all on Monday!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, December 25, 2004 4:07 AM CST

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Have a happy Christmas -Glad all is well with your gorgeous Kids love Laura(mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Friday, December 24, 2004 2:42 PM CST

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Merry Christmas all. I am so thrilled that all the shows went so great! and that you have the proof!! Opening presents tonight?! Don't let my kids hear you say that. I am on my way to check on Lindsey. Have a great Christmas. Love,Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, December 24, 2004 2:20 PM CST

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Friday, December 24, 2004 1:24 PM CST

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Merry Christmas!!!!!!!!!!!!!!!!!!!!!!!!

Love and Hugs,
Tami
www.caringbridge.com/ca/slawson <tlslawson@aol.com>
- Friday, December 24, 2004 8:28 AM CST

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Merry Christmas to all and have a fun night! See you all on Monday!

Love to All
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, December 24, 2004 7:20 AM CST

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Happy Holiday!!! Thinking and praying for your family!!!

Andrew’s Journal
Paulina Jump <caljump@msn.com>
Sparta, KY USA - Friday, December 24, 2004 6:28 AM CST

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I love your new picture in your Christmas dress!! How cute! Merry Christmas to Ali, Ashley and mommy and daddy!! Happy New Year too!!! Hope Santa brings you everything that you ask for!!!!
Kaitybug's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, i - Thursday, December 23, 2004 7:34 PM CST

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With our best wishes for a Merry Christmas, and a HEALTHY and happy 2005. May all your dreams come true...
With love and blessings,
Claudina (Caterina's mom) www.caringbridge.org/ny/caterinamarcus <claubonetti@aol.com>
Durham, NC - Thursday, December 23, 2004 5:42 PM CST

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Merry Christmas and Happy 2005!!!
Lisa Post <LMPOST@cox.net>
- Thursday, December 23, 2004 4:13 PM CST

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Have a wonderful christmas and a happy new year.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Thursday, December 23, 2004 9:01 AM CST

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Wishing you a very Merry Christmas.
Margaret, Mike, and Grace Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Wednesday, December 22, 2004 8:26 PM CST

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Hi Beauty Queens! You are both made for the movies!!!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, December 22, 2004 8:09 AM CST

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Jenn,
It was nice talking to you tonight. You have two beautiful girls! Love the hairdos! Keep in touch. Keep up the good work being an advocate for all children in need. I'm glad there is someone like you who is willing to put forth the effort.
Kara Johnson <kjohnson@medicine.nodak.edu>
Fargo, ND 58104 - Tuesday, December 21, 2004 11:02 PM CST

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Jenn,
It was nice talking to you tonight. You have two beautiful girls! Love the hairdos! Keep in touch. Keep up the good work being an advocate for all children in need. I'm glad there is someone like you who is willing to put forth the effort.
Kara Johnson <kjohnson@medicine.nodak.edu>
Fargo, ND 58104 - Tuesday, December 21, 2004 11:02 PM CST

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Just checking in to see my baby doll...still cute as ever. Can't wait to see you all. I miss you Jenn! Jeff is here and it is so nice to visit with him. Fun for my Mom. Hugs to all, Love-Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, December 18, 2004 9:22 PM CST

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Alli looks so cute practicing for the Christmas program. Its hard to believe how fast these kids grow up! We sill be praying your home treatments will work out! What a blessing that would be! The Christmas season is so busy and goes by so fast! Hope to catch up with you soon!
Rachel Cremer <jrcremer@hotsprgs.net>
Hot Springs, MT USA - Saturday, December 18, 2004 7:00 PM CST

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Hi Alli and Family!
Allison looks adorable in the homepage picture! Sorry we haven't signed in for a while (computer problems.) Hope you have luck getting the home infusions. I'm glad that Alli has been staving off any major colds. Max has been doing well with not getting sick so far this winter too. We'll check back soon.
Paul and Max Forand <Forandkerrigan@comcast.net (www.caringbridge.org/nj/maxforand)>
Millville, NJ - Friday, December 17, 2004 3:32 PM CST

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Hi! Hope you all are doing just fine.
Allison and Ashley are so cute!

Thinking of you all!

Hugs from Vibeke.

Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Friday, December 17, 2004 11:39 AM CST

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Hey Jenn,

You know I never sign (insert the "Bad Boys" AKA cops theme here). But could Alli get any cuter?? Holy Buckets!! She is just to cute!!!

Jenelle said HI and sorry she has not called. She will call you soon and Noah looked GREAT today! OH and Connor has pictures all over the kitchen of Miss Alli!!
Tami Slawson ( www.caringbridge.com/ca/slawson ( <TLSlawson@aol.com>
- Friday, December 17, 2004 2:51 AM CST

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Here I thought that the pictures were from the Sunday School program. Have fun all and sing, sing Ashley and Alli!

Love, Nana
p.s. are you counting the day till I get there??
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, December 16, 2004 5:55 PM CST

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I have to see the new pictures every day! Alli, I brought you a magic wand yesterday to make all your dreams come true! I bet it will make the magical sound all the way to Bismarck!!!! See you soon!
Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, December 15, 2004 9:07 AM CST

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I love the new photo Miss Petunia!!! I'm getting ready to leave on my trip so I will talk to you when I return. I will miss you guys!

Jess
Angel Kaity's Site
Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, December 14, 2004 5:28 PM CST

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Wow! Alli, you looked like you were singing away!! Too cute!! You are a living doll, my baby doll Alli!!!!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, December 14, 2004 3:42 AM CST

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I LOOOOVVVEEEE the new photos.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Tuesday, December 14, 2004 2:53 AM CST

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HI JEN AND ALI
I HOPE ALL IS WELL.YOU HAVENT UPDATED IN A WHILE SO I HOPE ALI IS DOING GOOD.KATILYNN IS DOING GREAT AND TREATMENT 2 WEEKS IN A ROW SO WOOHOO.I HOPE THAT YOU HAVE A GREAT CHRISTMAS AND I HOPE THE NEW YEAR BRING GOOD HEALTH AND PAIN FREE.LOVE YOU GUYS KATHY AND KATILYNN
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Monday, December 13, 2004 12:25 AM CST

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I talked to Alli yesterday after I brought her one of her Christmas presents. She begged me to tell her...I did not! I can not wait to see you all...I am counting the days!
Hugs and kisses, Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, December 12, 2004 10:28 PM CST

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Have a great weekend everyone!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, December 11, 2004 5:06 AM CST

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The new photo of Alli is adorable! One of your best Jenn! Love to you guys and I hope everyone is almost ready for Santa!!

Jess
Mom to Angel Kaity

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, December 10, 2004 4:08 PM CST

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Just stop by to say Hello and Send my prayers to your family. Allison is so cute.

Have a Happy Holidays.
((HUGS))

www.helpourgirls.com
Tayyaba <Tayyaba@helpourgirls.com>
NJ - Thursday, December 9, 2004 10:05 PM CST

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Hi Jenn, Alli is soooo cute! I'm happy to hear that Alli's infusions are going great. Rei should be starting home infusions soon, I hope! Give your angel a big hug and kiss from me!!
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, c USA - Wednesday, December 8, 2004 9:50 PM CST

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OK, I just have to ask???? Can Alli get any cuter?? Holy Buckets! She is just toooooo cute!!!! I'm so sad I have to wait a until 2005 to see her again!!!!!!!!!!!!!!1

Call me tomorrow!
Love and Hugs,
Tami ( www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com>
- Monday, December 6, 2004 2:24 PM CST

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HI ALI
I JUST WANTED TO STOP TO SEE HOW YOU WERE DOING I LOVE THE NEW PICTURE AND I AM SO GLAD THAT YOU LIKE CHURCH SCHOOL SOUNDS LIKE FUN YOU ARE GETTING TO BE A BIG GIRL.WELL SENDING YOU LOTS OF HUGS AND KISSES LOVE KATHY AND KATILYNN
KATHY AND KATILYNN <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Sunday, December 5, 2004 1:12 PM CST

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"OH, YOU BEAUTIFUL DOLL, YOU GREAT BIG BEAUTIFUL DOLL!!!"
Alli, I LOVE your picture without the casts...I Love you and Miss you. Fun on the phone today Baby Doll. I am counting the days till I get there to see you and your sister, Mom and Dad!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, December 2, 2004 7:15 PM CST

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That is the most precious hay-bale portrait ever! Allison and Edie Burke could pass for sisters. They are both gorgeous. I'm glad to know she is doing well...enjoy it all. Take care and God bless y'all. Hugs and kisses to Alli from Lindsey & Hannah,
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Wednesday, December 1, 2004 11:13 PM CST

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Stopping by to see what is new. Hope everything is well. Love the pictures.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Wednesday, December 1, 2004 8:20 AM CST

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Knock, knock!!! Where is everybody???
I hope all is going well this week in the Restemayer home!

Jessica
Mom to Angel Kaity

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, November 30, 2004 10:09 AM CST

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Have a great start to the week! I'm counting the days till I get there to hug and kiss my babies!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 29, 2004 3:43 AM CST

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Adorable pictures, as always. And is that pink fingernail pollish I see?!?! I feel Janell's influence on that one, am I right Jen? Anyway, just checking in to see how everyone is doing, hope you had a good thanksgiving.

-john
John Bennett <jb3_42@hotmail.com>
Ramsey, MN 55303 - Sunday, November 28, 2004 10:50 PM CST

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Just checking in to see how Alli is doing. I hope you had a wonderful Thanksgiving! I was wondering if you have any new info on Noah Scott? Please let me know. Or if you know of a web site for him. Thanks Jenn, Thinking of Alli on a daily basis!
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, ca USA - Sunday, November 28, 2004 9:47 PM CST

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DEAR ALI AND JEN
JUST WANTED TO STOP BY AND CHECK ON YOU ALL.I HOPE THAT YOU ALL HAD A GREAT THANKSGIVING AND WEEKEND.TELL ALI THAT IF SHE EATS TO MUCH TURKEY SHE WILL TURN INTO ONE LOL.WELL I WILL BE BACK TO CHECK ON YOU ALL SOON.I FINALLY GOT A DIGATAL CAMERA SO I WILL BE ABLE TO POST MORE PICTURE OF KATILYNN AND THE FAMILY.SO I WILL TALK TO YOU ALL LATER GAVE ALI A HUG AND KISS FOR ME.LOTS OF HUGS AND KISSES KATHY AND KATILYNN www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, November 27, 2004 6:44 AM CST

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Happy Thanksgiving from the Frye's
Kimberly Frye <drafrye@aol.com>
La Crescenta, ca - Thursday, November 25, 2004 0:24 AM CST

---

HAPPY Thanksgiving!

lOVE, mom
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, November 24, 2004 7:37 PM CST

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Jennifer, you and your family will always be in my prayers. I am blessed to have worked for you and see what a beautiful family you have.
Anne Devine <annedevine@hotmail.com>
Watertown, SD USA - Tuesday, November 23, 2004 9:24 PM CST

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Monday, November 22, 2004 7:00 PM CST

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Good Morning to you! Alli was so cute on the phone yesterday. She has such stories to tell!!
Have a great start to the week.

Hugs!!
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 22, 2004 7:36 AM CST

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I hope you and your family have a wonderful Thanksgiving. The ponchos are great. I make blankets and scarfs like that. Give Alli a big kiss for me.
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, CA USA - Sunday, November 21, 2004 9:06 PM CST

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From our family to yours have a "HAPPY THANKSGIVING"
Kaitybug's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, in - Sunday, November 21, 2004 4:23 PM CST

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Wet weekend here so far. Warm but rainy!! I wrote out my Christmas cards today!! Thinking of you all and missing you!

Love, Hugs and kisses
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, November 20, 2004 1:44 PM CST

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Just stopping in to wish you a wonderful Thanksgiving and to tell you that I send an ecard to you


www.caringbridge.org/ms/candaceangel
Krystal <krysparkt@netscape.net>
Dekalb, MS USA - Friday, November 19, 2004 2:30 PM CST

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Just stopping by to see how everyone is doing! I loved the ponchos Jenn. You did a wonderful job. The girls are nothing but classy chicks now.
Love you all bunches!

Jessica
Mom to Angel Kaitlynn

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, November 19, 2004 10:39 AM CST

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hi ali and jen
i hope you all are doing great.katilynn is sick again with a virus i just hope that its just a 24 hour thing.we get to go to a new hospital for treatment starting monday and its only hour and half away instead of the 4 1/2 hours like cincinnati ohio where we have been going.so hopfully katilynn will be over the sick spell.but anyway here are those measurements that you wanted for katilynn head 21inches and she is 33 inches long if you need anything else just let me know.i would be happy to pay you for fixing that for katilynn and i will pay you for shipping.just let me know.will check back on you all soon.kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, November 18, 2004 10:08 AM CST

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Hi Babies! I miss you and am thinking about you today!!

Love, Nana
janelle <shoe111550@yahoo.com>
- Tuesday, November 16, 2004 9:16 AM CST

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Hi Jenn & Ali, love the new photos...your a sweetheart Ali. Hope your hands are healing and feeling good, think of you often and keep you in my daily prayers.
Love,
Chris Morrissey (Cade's Nana)
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Monday, November 15, 2004 9:20 PM CST

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I hope you are feeling well Miss Allison! I LOVE your pretty pink shawl and head wrap...you are too cool. Hannah is getting one like this and her's will be My Pretty Pony. Her great-grandmother is making it for her. Lindsey is sleeping and running some fevers, but we hope she will get well soon and her new Baclofen Pump will work wonders. Until then, we're still in the Children's Hospital. You take care of yourself and enjoy everyday...keep treating your family to your beautiful smiles! We love you,
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, November 15, 2004 9:04 PM CST

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Dear Allison, Were from Mississippi and your Grandmother (Nana) Janelle asked us to pray for you,your operation and for you to get well.We pray for God to heal and confort you and your family and God grant you the endurance to live through these difficult circumstances. Keep om smiling Love.
Stephen and Juliet Jassby <Jass15@aol.com>
Diamondhead, MS. USA - Monday, November 15, 2004 4:20 PM CST

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Alli, Thanks for singing me the Happy Birthday Song!!! It was the cutest thing I have ever heard sung since your sister at age 3 sang me the fish song...about 100 times!!
You made my day!!!!

Hugs and kisses! Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 15, 2004 4:09 PM CST

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hi jen
its me again i saw the pics and i saw that you made the girls poncho and i would love to get you to make katilynn one i would be happy to pay you for it and also the shipping and whatever else you need.just let me know and if you have time to do it.thanks kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, November 15, 2004 1:56 PM CST

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hi ali and jen
love the new pic and i also love the poncho.where did you get that or did you make that i just love that.ali lookes so cute in it.i am so glad that she is doing so well after the surgrey.please give her a big hug and kiss for me and katilynn.let me know if you made that poncho or if you bought that i would love to have one for katilynn.check back soon love and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, November 15, 2004 1:41 PM CST

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What Dolls! Can't wait to see you all.

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 15, 2004 3:23 AM CST

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Photos, as always ,are fab. I think you will be getting orders for Ponchos.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Monday, November 15, 2004 2:22 AM CST

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THAT is the cutest picture I've ever seen!!! Miss Allison is so hip in her precious poncho!
Love,
Amy White <kkwhite@ucsd.edu (www.caringbridge.org/page/susannah)>
San Diego, CA - Sunday, November 14, 2004 10:42 PM CST

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Hi Jennifer! It has been a long time since I visited your site and I'm so glad I did! Once again, Alli's picture made me smile!! Pink casts and pink nail polish- so lucky! Take care and know that you are in my prayers all the time!!!
Love, Cathy <www.caringbridge.org/canada/isobel Jacon81@hotmail.com>
- Sunday, November 14, 2004 8:33 PM CST

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Just checking in on Ms Smiley! Hope your are dealing with the casts allright!
Kaitybug's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville, in - Sunday, November 14, 2004 11:01 AM CST

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Alli, You are...seriously...the CUTEST thing in the world with your pink casts and matching manicure!!! If Jakie ends up with a hard cast, I'll be sure that it is blue and I'll take a matching picture to send to you!!! :-) Also, thank your Mommy for calling me the other day. It was so nice to talk to someone that can completely relate! Take care sweet girl! Love, Mel
Melanie (Steve, Jake, & Matt, too) Irish <mairish@hotmail.com -OR- www.caringbridge.org/wa/jacobirish>
Marysville, WA USA - Saturday, November 13, 2004 0:42 AM CST

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Jenn,Jim, Alli and Ashley, Thinking of you all.

Love, Me
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, November 12, 2004 8:30 PM CST

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Thursday, November 11, 2004 3:40 PM CST

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Hi Babe, Hope the infusion went well. later!!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, November 10, 2004 2:16 PM CST

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What a trooper Alli is! And so is the rest of the familiy. Alli I just love your new manicure - I think your mom and I practiced that color on each other a few times:) Sending you guys our love and praying protection on all of you and quick healing for Allison.
Lots of Love, Rachel
Rachel Cremer <jrcremer@hotsprgs.net>
Hot Springs, MT USA - Wednesday, November 10, 2004 8:57 AM CST

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Just checing on that Hot Pink Girl!!!! Hope all is well.

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, November 9, 2004 6:07 PM CST

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Good Night Baby Doll, Sleep tight so Mom and Dad get some sleep too!

Love You, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 8, 2004 7:39 PM CST

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I am sorry that I missed the surgery prayers and I am glad things went well any way. She is such a toughie. What will you do about the high pressure reading? My computer is now up and working so I should be checking in more often. Hope all went well today with the kids. Love Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Monday, November 8, 2004 2:14 PM CST

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Ali, we are so glad your OK and back home!!!! You look great in all that PINK. So tickled pink to see you SMILE!
Jenn & Jim, we are so glad that everything went so well...God Bless You All.
And Ashley maybe we can set a play date or even a sleepover, Cassie would love that.
Take Care and Remember your always in our thoughts!!!!
Natalie <5krafts@bis.midco.net>
Bismarck, ND Burleigh - Monday, November 8, 2004 12:43 AM CST

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Jenn, She looks so darn cute!!! Only Alli could make having hand cast look like a fashion statement! Will be praying for you both today!

Love and Hugs,
Tami ( www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com>
La Verne, CA - Monday, November 8, 2004 8:01 AM CST

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Good Morning to the Pink kid!! Sending hugs and kisses Alli!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 8, 2004 6:55 AM CST

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Monday, November 8, 2004 1:29 AM CST

---

I know we have met before at a conference but not sure I have seen Allison's web site.
It is so strange how much our daughters look alike. Must be all that blonde hair! haha!!!
Glad to hear the ERT is helping Allison. What a wonderful thing!
Hope to see you again at Disney!
www.caringbridge.org/tx/sydnee
Trisha Jensen <trishajensen@hotmail.com>
Grapeland, TX - Sunday, November 7, 2004 10:47 PM CST

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Oh my Gosh!!! It’s a pink petunia!!! Big hugs for the Restemayer’s. I’m sorry I’ve been out of commission this past week and have failed to call and check on you guys. “Donald Duck” is keeping me SUPER busy with all the “fixer-uppers.” Hopefully this coming week will slow down a little for us. I sure miss you guys and think of you EVERY single day. Here’s hoping that the three weeks in casts will fly by!

Jessica
Mom to ^^Angel Kaity^^

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Sunday, November 7, 2004 10:11 PM CST

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Allison, you sure are pretty in pink! Glad everything went well.
Margaret Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Sunday, November 7, 2004 8:53 PM CST

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Miss Ali, you are a cutie! We are glad that everything went well. Melanie thought the pink cast and nails were great! We are sure glad we got to meet you in LA. Take care of yourself Jennifer. Hugs to you all.
P.S. Melanie says HI to Ashley
The Landons <fjlandon@centurytel.net>
Montesano, WA USA - Sunday, November 7, 2004 8:29 PM CST

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My Baby Doll! You are too cute!!! I send you all my hugs tonight.

I Love You, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, November 7, 2004 7:25 PM CST

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What a sweetie you are Ali. Glad to see you color coordinated your casts and finger nail polish, too cool. Hope your recovery is fast.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Sunday, November 7, 2004 4:51 PM CST

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Adorable she is absolutely adorable!! Thank you for sharing her special pink friends with us :) I hope her recovery continues to go smoothly. Prayers for Allie
Terri Klein <kleinrealtor@aol.com>
Whitmore Lake, MI USA - Sunday, November 7, 2004 12:19 AM CST

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Hope all is going well Jenn. Rest as much as you can!!

love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, November 7, 2004 9:16 AM CST

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Sounds like Alli did just fine as I knew she would! Hope your recovery is a speedy one, Alli!
Lisa Post <LMPOST@cox.net>
- Saturday, November 6, 2004 4:25 PM CST

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WELCOME HOME ALL!!!! I want to see pictures of that Baby Doll with her Casts!!!!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, November 6, 2004 9:01 AM CST

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Our thoughts and prayers are with you as Ali has her surgery. We hope all goes well and Allison will be home and running around and having fun again real soon! God Bless You Ali on a speedy recovery! ALL Our Love and Thoughts-----




Natalie <5krafts@bis.midco.net>
Bismarck, ND Burleigh - Friday, November 5, 2004 2:26 PM CST

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Hey Jenny, very happy to hear that everything went well yesterday. Give everybody hugs from your Fargo friends and know that we are always thinking of you.

Alli, I'm sorry that you have to wear casts on your arms, but I think hot pink is an awesome color for them!

Kay Beckermann <kaybeckermann@hotmail.com>
Fargo, ND USA - Friday, November 5, 2004 7:56 AM CST

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Hoping that everything goes as smooth as silk for all of you. Give Alli a big hug!
Amy Holland <amy.holland@charter.net>
Ft. Worth, Tx USA - Thursday, November 4, 2004 11:26 PM CST

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10 kisses...one for each finger Alli!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, November 4, 2004 6:41 PM CST

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Alli,
We are thinking of you today and praying all is going well! We are sure you will be ok. Love to you and all your family always,

Claudina (Caterina's mom) www.caringbridge.org/ny/caterinamarcus <claubonetti@aol.com>
Durham, NC - Thursday, November 4, 2004 10:23 AM CST

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Alli, Alli, Alli...I am thinking of you this very minute as this is the scheduled time for you to be put under. Nana Loves you Baby Doll!!!!
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, November 4, 2004 7:07 AM CST

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Alli, I hope you got to enjoy lots of that Halloween Candy, You and Ashley looked great in your cosutmes. I will be keeping you in prayer that all goes well, and you get to come home very soon! Keep on smiling sweetie!
(((Hugs and Kisses)))to you and mommy!

Love,
Patty and Jesse
http://www.caringbridge.org/md/myjesse
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Wednesday, November 3, 2004 6:41 PM CST

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Hope everything goes well in Minnesota and you are home soon. Keeping Ali and her family in my thoughts and prayers for tomarrow.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Tuesday, November 2, 2004 8:51 PM CST

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Great picutres Jenn!!!!Alli is, as always, beautiful! We are praying everything goes smoothly for Alli's surgery. Please give her big hugs from Caroline, Ty and me! Love,

Kim Downham <jdownham@earthlink.net>
Houston, - Tuesday, November 2, 2004 4:37 PM CST

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I have been thinking of you guys so much latly and I am praying all goes smoothly this week. Give Miss smilie a hug and kiss from me. :)
Misty <coreyvannostrand@netscape.net >
Lawrence, ks USA - Tuesday, November 2, 2004 1:22 PM CST

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Our thoughts and prayers are with you this week and always.
Chad, Jane, McKenzie, Haydn and Lucas <Mckaydas@comcast.net>
Andover, MN - Tuesday, November 2, 2004 10:54 AM CST

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TODAY IS THE DAY YOU LEAVE!!! Travel safe my loved one's and all our prayers go with you. Hugs to Alli.

Love, Mom and John
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, November 2, 2004 8:53 AM CST

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Aunt Rhonda will thinking and praying for Little Ms Smiley! Have a safe trip and keep us updated when you can! I love the new picture that you have up! What an adorable little unicorn!!! Ashley looks cute to! Looks like they had alot of fun!
Kaitys Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville , Indiana - Tuesday, November 2, 2004 7:13 AM CST

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You are in my thoughts and prayers today little Miss Pea Pod!! And that goes for your Mommy too. Your Mommy is not feeling very good right now. She doesn’t like to think about you going to the hospital. We all know that you will be fine we just have to convince Mommy of that!! I will be waiting for your phone call after you get your “fingers” fixed.
Love you bunches!

Jess
Angel Kaity’s Site

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, November 2, 2004 7:13 AM CST

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Alli, I'm sorry you have to make a trip the the hospital for all that yucky medical stuff, but you have a lot of people who are thinking about you and praying for you. You and your sister look so cute in your costumes. I bet you had a blast on Halloween!
Love Ya,
Kris and Kraiggy
Kraig's Journal
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Tuesday, November 2, 2004 7:02 AM CST

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I hope all goes well. We will be thinking of you.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Tuesday, November 2, 2004 2:17 AM CST

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Hey Jenn!
Thinking of you and Miss Allison. We'll surely be keeping you all in our prayers. Big hugs from New York.
Blessings,
Debbie V
Debbie Vanderpool <djvpool@frontiernet.net>
Rochester, NY - Monday, November 1, 2004 11:01 PM CST

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We know the power of prayer and will pray for Ali, the doctors, nurses and families.
God is our hope and comfort.
Nana Coleen <coleenolaf@yahoo.com>
Boise, ID USA - Monday, November 1, 2004 8:13 PM CST

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Alli, you are in our prayers. Lots of hugs and kisses from Reilene and Nikkolas.
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, CA USA - Monday, November 1, 2004 2:02 PM CST

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Jen I sure will be thinking of you and little Ali and the 4th of Nov.! I sure hope everything turns out ok! Please keep us posted when you can! I know it my heart that all will go well! Hugs and Kisses!!!
Kaity's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville , IN - Monday, November 1, 2004 1:55 PM CST

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I will keep Alli in my prayers for safe surgery on thursday!
Lisa Post <LMPOST@cox.net>
- Monday, November 1, 2004 11:40 AM CST

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Will be thinking of you and of course Alli -hope all goes well for the surgeries Love Laura (Mum to Will mps2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, October 31, 2004 3:15 PM CST

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Happy Halloween to my Girls! I will call tomorrow to hear all about the costumes of choice!!
Jenn, Your sister Jessica will be there to help you through the first night. She will give Alli a hug from me and I really feel deep down that this will be just fine!!
I love you Daughter and Alli is always in my heart.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, October 29, 2004 8:08 PM CDT

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Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Friday, October 29, 2004 1:41 PM CDT

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I found my way to your site from another Caringbridge site. You have a beautiful girl! I know you are all worried about the upcoming tests and surgeries. Know that we will be praying for good results and a quick recovery. May God bless each of you every day!


Caden's Connections
Vicki & Caden Williams <vicki.williams@netxv.net>
San Angelo, TX USA - Thursday, October 28, 2004 12:55 AM CDT

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I know you are nervous about the surgeries Jenn. I wish I could answer your question about Carpal Tunnel. The first person that comes to mind is Kris Klenke since Kraig had the same surgery. Hopefully Gabrielle will be a great amount of wisdom as well.

I will keep you in my prayers, not only for successful surgeries, but to also give MOMMY strength during the upcoming days. Alli will be fine! I just know it!!
Love you bunches,
Jess
Angel Kaity's Site

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Thursday, October 28, 2004 9:00 AM CDT

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hi jenn and ali
we are keeping you in our prayers and ali will do good through surgrey.please give her a hug and kiss for me and katilynn.let me know how everythings goes.i would like to know more about the surgrey on alis hands cause katilynns ring finger it bent almost all` the way together.hope to here some good news after ali surgrey.love kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, October 28, 2004 6:05 AM CDT

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Hi Jenn, Just wanted to let you know that Alli is in our prayers. Reilene also had the trigger release surgery, now you can't even tell she had anything wrong with her fingers. I'll be praying for Alli. Love the pictures.
Gabrielle Rivas <gabbi_001@msn.com>
Southe El Monte, CA USA - Thursday, October 28, 2004 0:19 AM CDT

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Hey Jenn The site is great!! What a cute picture of allison

Keep up the good work

Heather Zietz <heatherzietz@aol.com>
- Wednesday, October 27, 2004 9:07 PM CDT

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Have a good infusion day tomorrow Alli! Thinking of you always!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, October 26, 2004 7:16 PM CDT

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Hey there! I'm so glad you had a fun and encouraging trip to CA. Alli and Ashley are looking so grown-up these days. We are all thinking and praying for you often. Thanks for keeping us up to date.
Sending you much love,

The Cremers
Rachel Cremer <jrcremer@hotsprgs.net>
Hot Springs, MT USA - Tuesday, October 26, 2004 10:36 AM CDT

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Hello
I am Caterina Marcus' aunt and I was checking up on how you were. I am glad everything is so well. We have you in our prayers.
Best wishes
Ligia
Ligia Bonetti de Valiente <l.bonetti@mercasid.com.do>
Santo Domingo, Dominican Republic - Monday, October 25, 2004 4:55 PM CDT

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I HOPE YOU HAVE A GREAT HALLOWEEN!!!



TRISHA ATHY CARINGBRIDGE.ORG/IL/AARONATHY <AARONSMOM1027@SBCGLOBAL.NET>
- Monday, October 25, 2004 3:13 PM CDT

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Love the photos. Hope to see more.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Monday, October 25, 2004 3:32 AM CDT

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Love the photos. Hope to see more.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Monday, October 25, 2004 3:32 AM CDT

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Hi Jen, thank you for responding, sounds like California was alot of fun. I'm glad you guys had such a good time and even made some new friends.

Take care, Susanne
Susanne Restemayer <leereiner@charter.net>
Grants Pass, OR USA - Sunday, October 24, 2004 11:23 PM CDT

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Hi Alli, I am thinking about you today and am starting to send you well wishes on your surgery on your hands. I love you My Baby Doll!!!!!!!!!!!!!!!!!
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, October 24, 2004 7:47 PM CDT

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Good Morning My Girls and Jim, Have a great day and have fun!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, October 23, 2004 8:51 AM CDT

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Pictures are adorable!! But its my turn now! I wanna meet Ali and Asley and Jen!!!!! Jess can come too!!!
Kaitybug's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, In - Friday, October 22, 2004 8:10 PM CDT

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Thank you Jenn, for giving me the opportunity to meet and spend time with you and the girls in California! It meant the world to me! The Restemayer's are precious and I hope we can all get together again!
Always in my thoughts!

Jessica
Angel Kaity’s Site

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, October 22, 2004 11:39 AM CDT

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I'm hearing so many good things about the walk/run in CA. So glad you and the girls were able to go and meet so many of these fantastic families! The pictures are sooo cute! Best wishes.
Lisa Post <LMPOST@cox.net>
- Friday, October 22, 2004 10:26 AM CDT

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Hi, I was so glad to meet you and your beautiful daughters at the run/walk in CA. Allison is toooo cute! She reminds me so much of Reilene. Those pictures you posted of Alli and Reilene are awsome. I can't wait to show Reilene, she'll flip out just to see herself and "her friend" as she calls Alli. I'm glad Rei was able to meet her, so far she's only met boys with Hurler. We met a little girl last year, but the mom didn't keep in touch. I hope we can. Again, nice meeting you and the girls. Give Alli some hugs and kisses from Reilene and Nikkolas.
Gabrielle Rivas <gabbi_001@msn.com>
Southe El Monte, CA USA - Friday, October 22, 2004 1:38 AM CDT

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To My Lino Babes! What a fun account of the fabulous trip! I just want all to see how much we love our Alli and how very special she is to us!! The trip was fun and again, thanx to all who helped my daughter and my Grand daughters.

Love, Janelle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, October 21, 2004 7:49 PM CDT

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Wow! A littly clingy maybe, smart as a whip, absolutely!!! That is amazing. You are going to have to keep an eye on that one. I thought you were going to say they lost her. Andrew wonders away from his Sunday School and the class is too big for them to follow him. Don't get me started. They are getting him an aide so I shouldn't complain, but why stop now?! I am glad all is well. Love, Anne
Anne Himes <arhimes@msn.com>
boonsboro, md usa - Wednesday, October 20, 2004 12:25 AM CDT

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Hi. My name is tayyaba. My all three girls have Sanfilippo sydrome-B. I read your journal first time and it bring tears in my eyes. My heart really break when I know other families dealing with this disease. I wish no parent ever have to go through this.
Big hug for Allison. She is a really cute princess. I love to know more about the enzyme therapy. Love all the pictures.
You will be in my prayers from now on.
www.helpourgirls.com
Tayyaba <tayyaba@helpourgirls.com>
NJ - Tuesday, October 19, 2004 9:04 AM CDT

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Good Morning All, Have you all recovered from the time change? I bet Ashley was a tired girl after school yesterday!! Have a good Tues.

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, October 19, 2004 7:26 AM CDT

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Did I hear the stories from the girls! Great Job everyone! It is so nice for everyone to put a real face to the internet messages sent by you all. I am sure my girls enjoyed themselves so much!!!!!! XXXXOOOO, Janelle (Alli's Nana)
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, October 18, 2004 4:29 PM CDT

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Hey Baby Dolls! Welcome back!! I can't wait to hear all about it. I will call you Monday morning for the fun details.

Hugs and more Hugs!
Love,Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, October 18, 2004 2:44 AM CDT

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Well I heard that fun was had by ALL!! I wish I could have meet you guys too! Jess tells me just how precious Ali, Ashley and you Jen are! Now you have got to come visit in Indiana I wanna meet you too!!!
Kaitybug's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, in - Sunday, October 17, 2004 4:55 PM CDT

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Hi Girls, I know that you are all in Calif. by this time. Hope the trip went well and you are all going to get a good night's sleep!

Hugs and Kisses!!!
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, October 15, 2004 6:59 PM CDT

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Less than 24 hours Peppermint Patty!!!!!!!!!!! I’m trying to make myself sleepy by surfing the web. I’m afraid it won’t help! I’m way too excited to sleep!! I have goodies for everyone too! My suitcase will be much lighter on the way home after Alli & Ashley take home half of the contents!
See you guys tomorrow!!!!
Jess

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Thursday, October 14, 2004 7:13 PM CDT

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Finaly Good-by to the girls heading to Calif!!!!!! Have a safe trip and have tons of fun! Can't wait to hear all about it!!!!!!!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, October 14, 2004 5:37 PM CDT

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Hello, Ali, Jenn, Ashley and Jim- SORRY it's taken so long to keep in touch with you ALL. It's been hectic around our house. The house is SOLD and we need to be out by the 29th!!!!! But we are thinking of you in our daily thoughts and wishing only the BEST each and every day.....Hoping ALL is well with you guys too!!!!! We are thinking of you every day.......Our new address is 3031 Wisconsin Drive......So God Bless to you All, Our Love
Natalie <5krafts@bis.midco.net>
Bismarck, Nd US - Thursday, October 14, 2004 12:12 AM CDT

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Ok you are now down to 2 days before you are to meet Jess!I am reminding you to take lots of pictures for Aunt Rhonda waiting back here at home! Have a great time!!!! All of you!!!
Kaitys Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville , in - Wednesday, October 13, 2004 7:30 PM CDT

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Allison told me on the phone, “Today is Monday…on Friday, we go to California… on the airplane!!!
FOUR MORE DAYS POWDER PUFF, FOUR MORE DAYS!!!!!!!!!!
(I’m not sure who’s more excited, Jessica or Alli !!! )

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Monday, October 11, 2004 8:23 PM CDT

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Hi Girls, I sent you something in the mail today to help buy a few gifts in Calif. Have a GREAT time and I'll be thinking of you all!!

Hugs and Kisses!!
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, October 11, 2004 7:01 PM CDT

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Jenn, I had not looked to see the poster till tonight. Nice! Such lovable faces...I feel like I too know so many of those lovely kids! Have fun in Calif. I'll be thinking of you all!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, October 10, 2004 8:38 PM CDT

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Hi Jenn, just checking in on our sweet Alli!!! I love you new pictures- Alli looked like such a trooper for her sleep study!!! Ty would not cooperate one bit with all those wires and monitors. The poster looks great! Well Done!
Hugs to Alli!

Love,
Kim, Caroline and Ty
Kim Downham <jdownham@earthlink.net>
Houston, TX - Sunday, October 10, 2004 6:27 PM CDT

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YOU HAVE A BEAUTIFUL LITTLE GIRL HOPE ALL GOES WELL FOR YOU ALL, AND GOD BLESS YOU
WANDA STIGALL <alanda48@yahoo.com>
SOMERSET, KY USA - Sunday, October 10, 2004 12:37 AM CDT

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good-night to you all

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, October 8, 2004 10:34 PM CDT

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Hope you all have a great time at the Walk love Laura (MUM TO Will mps2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Friday, October 8, 2004 2:47 PM CDT

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Alli, Alli, Alli---You can NOT tell the teacher to call your Dad to go home!!!! But hey! She's only 3! LOL
Have a great trip to Calif. You guys will have a blast. I am so glad that Ashley is going too!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, October 7, 2004 12:28 AM CDT

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That Alli...the talker! So fun to hear others talk about how she can talk on the phone. How much fun are they going to have? I'll try to call you Jenn on my walk today when I think most will be sleeping.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, October 6, 2004 12:20 AM CDT

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She looks great and I am so glad to hear all the good news. Thank goodness for ERT. Thanks so much for the updates. I feel this gives all of us hope to see how great Allison is doing.
Maria Tuckett <mariaetuckett@aol.com; caringbridge.org/ut/tuckett>
Murray, UT US - Wednesday, October 6, 2004 0:35 AM CDT

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How cute!! I wanna go!! I wanna see the orange bear!!! Better take pictures Jess!!! I could just hear here on the phone! Remember we couldnt tell Kaity when Dad was coming home because she didnt understand TIME!! And every airplane that went over it was DAD on there!!!
Kaitys Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, IN - Tuesday, October 5, 2004 5:55 PM CDT

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You guys should have heard Allison on the phone today! We talked all about our trip and how Dad has to stay at home! We talked about how Jess has a little surprise for her and Ashley to unwrap when we get to California. Alli said, “We go in three minutes!” I said, “No Alli! 10 DAYS!! She said…”Oh...okay...we go in three hours!”

Jenn is going to kill me. I almost mentioned the swimming pool but figured I would definitely be on her bad list if I did that! We also talked about church school and her orange Teddy Bear!

10 more days Apple Dumpling!!!!!

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, October 5, 2004 4:18 PM CDT

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11 more days, 11 more days, 11 more days!!!! I'm just a little excited in case you can't tell!!!

Jessica
Mom to ^^Angel Kaity^^
Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Monday, October 4, 2004 10:47 PM CDT

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Have a great weekend All. Off to Calif. for the weekend. Talk to you on Tues.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, October 1, 2004 6:29 PM CDT

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Hi, I fianlly got to talk to Jenn and wow! she's starting this school year with some new faces in her daycare. Guess that is why the delay in the updates. Busy and loud over the phone so I know that she is adjusting to her new schedule and kids. Alli sounded great on the phone.
Hi to Ashley and talk to you all again real soon.

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, October 1, 2004 7:02 AM CDT

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Hi Girls! and Jim! I am just checking in to see "what's new"?? Just called you Jenn...forgot it was Weds. Hope all went well today.
Hugs and Kisses to my Babies!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, September 29, 2004 9:10 AM CDT

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Hi Ali and Ashley! And Hi Jen! I love your new picture you have up! Its nice to have a face with a voice on the phone!! I am just checking in on my little Ms Smiley!!! Hope all is well you! Be a good girl!!
Kaity's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville , IN - Tuesday, September 28, 2004 7:17 PM CDT

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Hi All! Enjoy your week!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, September 27, 2004 10:24 AM CDT

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Im so glad to here things went well In Minneapois
Lee ,Susanne,and Gabriel <leereiner@charter.net>
Grants Pass, OR USA - Sunday, September 26, 2004 12:01 AM CDT

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OH MY GOSH! I just saw the picture for the sleep study! I don’t know how she ever went to sleep Jenn! Bless her heart! And Allison!! You are so lucky having your photo taken with Sponge Bob!! Woooohooooo!

Okay girls…we are on a countdown again! We only have 20 days left!!!! I can't wait!!!


Jess

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, September 24, 2004 5:58 PM CDT

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I just love the new pictures! Alli looks so good and Ashley sure goods great with Sponge Bob!
Have a great last school day this week and enjoy your weekend.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, September 24, 2004 8:23 AM CDT

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hi jenn and ali and ashley
ty for the new pictures that u posted.ashley katilynn would have went crazy over sponge bob he is such here favorite.i hope everyone is doing well.ali lookes like she is getting to be a big girl now.well guys i will check back in soon.lots of hugs and kisses
kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, September 23, 2004 6:30 AM CDT

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So glad to hear things went well in Minneapolis. Allison is amazing!
Margaret Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Wednesday, September 22, 2004 11:16 PM CDT

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Hi Girls and Jim, I'm in Ws visiting Aunt Jessica. Nice flight and we'll be calling this weekend!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, September 22, 2004 8:49 PM CDT

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Wonderful!
I am so glad you had such encouraging results! Jenn and Alli look so relaxed and happy on your opening picture - you guys are such an encouragement to me - the process of keeping on. Sending you our hugs and love.
Rachel Cremer <jrcremer@hotsprgs.net>
Hot Springs, MT - Tuesday, September 21, 2004 4:05 PM CDT

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Hi Jennifer - So glad to hear that you and Allison came through everything so well. After all that she has conquered at such a young age - she can accomplish anything she wants to with her life! I just had to tell you that I had carpal tunnel surgery two years ago, and it was such a relief afterwards to have my hands back! Good luck with all, and we'll be praying, too. Lori
Lori Quintus <lquintus@bis.midco.net>
Bismarck, ND USA - Monday, September 20, 2004 9:21 PM CDT

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Dear Little Moonbeam,
I’m so glad you are at home and all those tests are finished (for awhile anyway…Hugs for Jenn). I'm so happy that everything is showing signs of improving and maintaining! I just had to come and visit and give you the latest countdown numbers! We have 25 more days until we fly to California!!! WOOO HOOOOOO!!!!! I’m so excited that I will get to meet you, your Mommy, Ashley, Tami and everyone else!…I just can’t wait!!! See you there!!!

Jessica
Mom to ^^Angel Kaity^^

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Monday, September 20, 2004 8:22 PM CDT

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Hi Jennifer! Sounds like a very hectic but pretty positive trip to MN! I'll pray that Alli's heart issues are ok and that she won't need that dreaded hip surgery down the line. So glad you got to meet the Ries's! Susan really helped me through hurricane Francis while I was in FL! It must have been a nice surprise to bump into Tony the Tigre while on the elevator!
Best wishes as always!

Lisa Post <LMPOST@cox.net>
- Monday, September 20, 2004 3:05 PM CDT

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Glad Alli is doing so great. God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Monday, September 20, 2004 8:21 AM CDT

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hi ali.ashley and jenn
i am so everything is going good for you all.sorry i havent stoped in for a while just been busy.i had to take katilynn out of school because she just stayed sick alot.but there is always next year.so i will be back to check in lots of hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, September 20, 2004 6:21 AM CDT

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To My Love Bugs! Have a great Sat.

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, September 18, 2004 11:38 AM CDT

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LOVE Build-a-Bear...I'm so glad the girls got to experience it...did they make their own voice recording too? Such pretty pics of such pretty girls:)!!
Teri <tlxavier@cox.net>
Nashville, TN - Friday, September 17, 2004 4:36 PM CDT

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Hi All, GREAT picture Jenn and Alli! There are my two baby dolls!!!! Hurricane Ivan is over so I made it through my first hurricane but I am sure it was nothing like enduring all the tests of last week. Thinking of you all!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, September 16, 2004 6:12 PM CDT

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Hi Jennifer, Jim, Ashley and Allison:

We are so glad that you are back...Katie was really missing you, she kept asking how many days until you were back. Hope all went well in the Cities, I'm glad that you found a little time for some fun (the create a bear...)See you soon!!
Coreen, Jack, Katie Ryan <coreenee@msn.com>
Bismarck, ND USA - Wednesday, September 15, 2004 1:27 PM CDT

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Glad to hear that the tests are going well for Ali! I will say prayers for Ali tonight!! Sure hope that the rest of the tests come out ok as well and that Ali can do the sleep study with no problem! Give her hugs and kisses from Kaitys Aunt Rhonda!!!
Kaitys Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville , In - Tuesday, September 14, 2004 5:46 PM CDT

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Just checking to hear the latest Jenn. Hugs to Alli and Ashley!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, September 14, 2004 2:03 PM CDT

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Hi, guys!!! Thinking of you, praying for you, and waiting for good news! Call when you get home and get a chance!
Becky O'Meara and family <omeara2004@yahoo.com>
- Monday, September 13, 2004 3:47 PM CDT

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I can't sleep tonight so I hope all is going well for Alli in that department!! Good luck with all the testing today.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, September 13, 2004 5:05 AM CDT

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One day down and two to go! The Baby Doll sounded pretty excited about the bear! I don't know who was having more fun, Aunt Jessica or Alli or Ashley?!
Good luck for tonight and the rest of the tests.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, September 12, 2004 5:37 AM CDT

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Hi Ms Smiley!! I love your new picture up!! I wish for you a safe trip and good and easy test results! You and your family will be in our prayers!!!
Kaity's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, In - Friday, September 10, 2004 6:06 PM CDT

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Have a safe trip and good news in MN!!!
Lisa Post <LMPOST@cox.net>
- Friday, September 10, 2004 8:25 AM CDT

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Jenn and Jim, I am sending all my good thoughts your way as you spend these days having all those tests done with Alli. I know it is hard to watch all that being done to Alli. Keep strong and hold on tight.
I am thinking of you all.

Love from Mississippi
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, September 10, 2004 4:11 AM CDT

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TRAVEL SAFE! I am thinking of you all.

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, September 9, 2004 2:57 PM CDT

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We will just miss seeing you by 4 or 5 days. I hope all of the appointments go well and I will be praying for you. Give Allison a BIG hug from me!!!
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
- Thursday, September 9, 2004 2:21 PM CDT

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The new pictures are great. Best wishes for your trip to MN next week.
Margaret Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Wednesday, September 8, 2004 9:58 PM CDT

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You really do have beauties. Ashley is such a young lady. It's hard to believe she is only in 4th grade.
God Bless and hope Alli is all healthy soon.
France <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Tuesday, September 7, 2004 7:49 AM CDT

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Hey Jenn. Whew! Busy couple of days you have. I hope everything goes well with Alli's appts. I know Jess is excited to spend some time with Ash. Thinking of you guys...
Meredith Wold (Anderson) <meredithwold@hotmail.com>
Edina, MN 55436 - Monday, September 6, 2004 2:52 PM CDT

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Count down to the time for tests. Thinking of you all. Hugs and Hugs!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, September 5, 2004 7:04 PM CDT

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hi guys
i just wanted to stop by and say hi and love the new pictures.i will be back to check on you all soon give ali and ashley a big hug from me and katilynn.talk to you soon
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, September 5, 2004 11:20 AM CDT

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Hello Miss Pop Tart!
Wow! What a busy schedule you have lined up. I wish I wasn't so far away and I would help Mommy & Aunt Jessica with your care. It's going to be a very long week I'm sure! I have to go now...I was just missing you, but luckily Me and Donald Duck get to look at your picture every single day! I have you saved as a background image on my computer. Donald sat at the computer last night and said, "look at Miss Bubbles!"
You are loved in Indiana,

Jessica & Donald Duck

Brian & Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Sunday, September 5, 2004 9:29 AM CDT

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Hi All, I love the newest picutres. Jenn-send me the one of both so I can put it on my screen saver!!
I hear Aunt Jessica is going to come to the Cities to help out. GREAT!!!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, September 4, 2004 4:07 PM CDT

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Good Luck for next week, I will be thinking of you.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Friday, September 3, 2004 9:37 AM CDT

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What beautiful girls you have. I hope Allison is feeling better and I hope next week goes well. Those trips are never fun but it will be nice to have it over. We go in Nov. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, September 3, 2004 7:42 AM CDT

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I just finished reading Allison's journal, and she has such a sweet spirit for having endured so much. I will pray for all of you as she continues the regimen.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Thursday, September 2, 2004 11:55 PM CDT

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Hi Ali & Jenn, just want you to know I'm still checking up on Ali weekly, your in my prayers, good reports from all the dr. visits ahead of you. No worries about tomorrow or another shoe dropping, center on only today. Cade goes in for surgery 9/8 for hernia repairs, he'll be spending the night to make sure all goes well. Have a safe trip and know your all in my prayers...
Love,
Chris Morrissey (Cade Mateo's Nana)
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Thursday, September 2, 2004 10:28 PM CDT

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WOW! A busy schedule...I send all my hopes and prayers!

Love, Mom
Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, September 2, 2004 5:05 PM CDT

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Checking in on cute lil Ali and Ashley! Hope you both had a good day today!
Kaitys Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, In USA - Wednesday, September 1, 2004 5:47 PM CDT

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How is my little Flower Girl today? Sending you lots of hugs and kisses as I have a grove of palm trees planted in the front yard today. You will love them Alli! I hope you can come and play with me very soon. I miss you.

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, August 31, 2004 11:34 AM CDT

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Hi Girls, It rained here today so I spent the day putting away boxes. I am so glad I have lots of pictures of you all! Thinking of you!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, August 30, 2004 6:41 PM CDT

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I just love the new picture. Alli is just so cute. Good luck with 4th grade Ashley, that's a fun year.
God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Monday, August 30, 2004 7:55 AM CDT

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Hi Baby Doll, Have a great week! I am thinking about you!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, August 29, 2004 5:59 PM CDT

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I love your new picture Ali!! Aunt Rhonda printed it off too for a keepsake! Jess is coming to visit soon with lots of hugs and kisses! I will send some from me with Jess! Ashley hope your 1st day at school went good for you!
Kaitys Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, In USA - Sunday, August 29, 2004 7:10 AM CDT

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We have appts too in Sept and I am very nervous also - I do hope Alison's goes well we will be thinking of her love Laura x Mum to Will MPS2
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Saturday, August 28, 2004 12:05 AM CDT

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Hi to All, Just checking in to see how everyone is doing. I miss you all terribly. Hugs and kisses !!!

Love, Nana
Janelle Kunellis <shoe111550@yahoo.com>
- Friday, August 27, 2004 6:40 PM CDT

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Hello Little Lilac!
Every time I talk to your Mommy on the phone you are sleeping! Sorry I keep missing you. We only have 49 days left until we meet in California!! I can’t wait!! Be good for Mommy!

Congratulations on starting the Fourth Grade Ashley!

Jenn, I’m sure everything will go fine with Alli’s testing! Thinking of you always…

Jessica
Kaity’s Caring Bridge Site

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USofA - Friday, August 27, 2004 4:21 PM CDT

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hi all
just wanted to stop by and let u know that i am still checking in on you guys and i love the new picture of ali.katilynn has some new pictures on her site of the first day of school when u get time check it out.katilynn got out of the hospital wednesday and is doing so much better she still has a little cough but other then that she is fine.i am so glad that ali is doing so good it makes me so happy to know that the ert really works goo and the things i have to look foward to.well i have to run hope to hear from you all soon hugs and kisses kathy and katilynn.happy birthday jennifer hope its not to late
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, August 27, 2004 7:14 AM CDT

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I love the new photo.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.c.uk>
London, UK - Friday, August 27, 2004 6:13 AM CDT

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Hi to All, Just checking in to see if the flower girl and the junior bridesmaid are back to normal after the long weekend??? I was so proud of you all. My family was with me and that was all that mattered. Thank you Jenn. Thank you Ashley. And thank you Alli! You are all the best a mother or grandmother could ever hope for!

Love to All!!
Janelle Kunellis <shoe111550@yahoo.com>
Diamondhead, MS USA - Thursday, August 26, 2004 9:06 PM CDT

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Hello
Island Princess here stopping by to see how you are doing. I will keep you in my prayers.
God Bless you,
Island Princess

Butterfly Island


Island Princess <mooks@bellsouth.net>
- Wednesday, August 25, 2004 12:16 AM CDT

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Just stopping in to check on lil Ms Smiley! Needed a fix of that smile!!!!
Kaitybug's Aunt Rhonda <rjapril@insighbb.com>
Jeffersonville, IN - Sunday, August 22, 2004 7:08 PM CDT

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Hey Jenn, It is good to catch up with you and see your sweet little girl. Keep up the good work mom! Alli, you just keep on smiling. Hopefully we can all get together in ND soon.

Rachel Cremer <jrcremer@hotsprgs.net>
Hot Springs, MT - Thursday, August 19, 2004 1:46 PM CDT

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Jenn,
Hi. Long time no talk. I check in on Allison's webpage periodically to see how everything is going. Cute pictures as always. We really need to catch up. Hope to talk soon.
Kara Johnson <kjohnson@medicine.nodak.edu>
Fargo, ND USA - Thursday, August 19, 2004 9:34 AM CDT

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Jenn,
Hi. Long time no talk. I check in on Allison's webpage periodically to see how everything is going. Cute pictures as always. We really need to catch up. Hope to talk soon.
Kara Johnson <kjohnson@medicine.nodak.edu>
Fargo, ND USA - Thursday, August 19, 2004 9:33 AM CDT

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Hello Lil ms smiley!!! I am so jealous that you talked to Jess and Aunt RHonda missed it!!!
Kaitybug's Aunt Rhonda <rjapril@insighbb.com>
Jeffersonville , IN USA - Tuesday, August 17, 2004 7:05 PM CDT

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Hi my Flower Girl and my Junior Bridesmaid!! I can't wait to see you all and we will take tons of pictures! I love you all and Happy Birthday to my Baby (how old now Jenn??)

Hugs and Kisses!!
Janelle Kunellis <shoe111550@yahoo.com>
- Monday, August 16, 2004 7:44 PM CDT

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Another wonderful day here...thinking of you all.

Love Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Saturday, August 14, 2004 9:43 PM CDT

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Hi Girls! I am counting down the days till Jenn's birthday! Put the card into the mail today Jenn. I hope Ashley is baking you a cake!!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, August 13, 2004 4:14 PM CDT

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Alli~
Stopping in to say HI:):) Hope you had a great week Little Girlie Girl!!
Teri
Nashville, TN - Friday, August 13, 2004 2:27 PM CDT

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Hey Alli and Ashley, Just sending you both hugs and kisses. I hope your day was fun in the sun!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, August 10, 2004 8:53 PM CDT

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I love you Alli with all my heart. When another child is turning into an angel, we all cry with the family. I am as scared as the rest but I just want you to know, my lovely Granddaughter, that I love you with every inch of my soul. I send all my kisses and a HUGE hug for you, for this day and forever.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, August 9, 2004 8:45 PM CDT

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Just checking in on our "beautiful girl in the strawberry shortcake outfit" Caroline wanted to see more pictures- she also loves the beautiful girl in the hello kitty outfit! and asked if that was Alli's sister?
I'm glad the ERT went well and Alli, I am very proud of you for being such a big girl and remembering the tubes and being so careful!!! (((((Mommy Jenn)))))

Love,
Caroline and Kim
Kim Downham <jdownham@earthlink.net>
Houston, TX - Monday, August 9, 2004 6:38 PM CDT

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Jenn and Ali,

I just wanted to check in and see how you are doing. I think about you often and pray that things continue to go well. I am glad you were able to play at the park all week and that Ali is going down the big slide all by herself. Yeah!!!!!
Jennifer Stenberg <mhdmom2001@yahoo.com>
Moorhead, MN USA - Monday, August 9, 2004 12:39 AM CDT

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hi jenn and allison\
just wanted to stop by and say hi and ali i am so glad how well you are doing.keep it up girlfriend.katilynn startes school monday the 16th i hope she will like it.i think she will to be around all the kids.well i am going to go i will be back soon hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, August 6, 2004 8:35 PM CDT

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Hello Gumdrop!!!
I’m so happy your infusion went well. You are such a big girl making sure all your cords and lines stay nice and safe. ((((Poor Jenn))))

I was thinking since your Aunt is also named Jessica, I need to devise a nickname for myself. That way when I call your house, you’ll know who I am! Since you already know I live with Donald Duck…how about Daisy?? (hehe) I guess we’ll think about it and if I can’t come up with anything better…Daisy it will be. After all, it is my favorite flower!!!

Jessica

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Thursday, August 5, 2004 8:25 PM CDT

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Hello lil ms SMILEY! Just checking in on you today! Glad your infusion went well! Jess said she got to talk to you on the phone again .... man am I jealous! Buts thats ok she always shares with Kaitys Aunt Rhonda!!!
Kaity's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville , IN USA - Thursday, August 5, 2004 12:08 AM CDT

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Just checking in on lil Ms Smiley today! Hope your infusion is going well today!
Kaity's Aunt Rhonda <rjapril@insighbb.com>
- Wednesday, August 4, 2004 6:20 PM CDT

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HELLO beautiful little Miss Smilie. I hope all is well and you are having a great summer. Love Tonia & Taylor
Tonia & Taylor (MPS1 H/S) <tkarl5150@yahoo.com>
Mansfield, Ohio U.S.A - Wednesday, August 4, 2004 12:49 AM CDT

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Hello Sugar Lump!!

Kris left you a really cute giraffe! You are in my thoughts this evening (as if that is a surprise)! I’m counting the days until we get to finally meet! Let me think…if my calculations are correct… we have 74 days left! Wooo hooo!! Have a good infusion day tomorrow.

Jessica
MPS Forum

Jessica <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, August 3, 2004 9:35 PM CDT

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Hi Alli! Thinking of you and hoping your summer is going well despite the re-poking of the port!
Love, Cathy <www.caringbridge.org/canada/isobel jacon@shaw.ca>
- Tuesday, August 3, 2004 10:38 AM CDT

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Hey Miss Smilie and Family! Just stopping by to say Hello!

Love Ya,
Kris and Kraiggy
Kraig's Journal
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Monday, August 2, 2004 10:54 PM CDT

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Hello Allison. Just stopping by to see how your summer is going. Andrew has had accident with his port during infusion. We just had to watch it after his infusions. He is always on the go and hard for him to sit still.

Sharon Cochenour (mother to Andrew MPS II)
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Sunday, August 1, 2004 0:39 AM CDT

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Hi Babies! Thinking of you all tonight!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Saturday, July 31, 2004 9:24 PM CDT

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hi Alli,
I hope you are feeling well. Have a good weekend.
Jaime <Jaime13042@aol.com>
NJ USA - Saturday, July 31, 2004 9:26 AM CDT

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We all have accidents Jenn and sometimes it’s harder on us Moms than it is on the kids! I hope you are having a better day today. ((((Jenn))))

Dear Miss Buttercup,
I have been thinking about you today! Your Mommy told me that you guys walked ALL the way to your favorite park only to find it was under construction!! I bet you were madder than an old wet hen! Hopefully those silly men will have your park fixed soon so you can play on the slide again. Thinking of you today and hoping your day has been grand! xoxo's

MPS Forum Dot Com
Jessica Wellman <jessicalw@earthlink.net>
Crandall , IN USofA - Friday, July 30, 2004 4:50 PM CDT

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Hi Alli and Ashley, I am thinking of you today. Have a great weekend!

Hugs and Kisses!! Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, July 30, 2004 12:45 AM CDT

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Hey Jenn and Alli,
Caroline, Ty and I are just stopping by to say hello. sorry about the incedent during the infusion, it sounds like Alli handeled it well. Caroline loves Alli's pictures, and so does Ty- they fight over her, my baby- no my baby- no my baby.......

We all love her!!!!

Give Alli hugs for us!
Love,
Kim, Caroline and Ty
Kim Downham <jdownham@earthlink.net>
- Thursday, July 29, 2004 10:13 PM CDT

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Wow Jenn! Scary...but have I ever told how I dropped you from the changing table??? LOL (see? everyone is OK EXCEPT the Mom!!!)

Hugs! Love Me
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, July 29, 2004 5:24 PM CDT

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Once when Andrew was just home from Duke, he was getting his IVIG infusion. He was sitting on the couch and the pump was on the coffee table in front of him. Hannah had been warned to be careful but in her five year old fasion she came pounding through in her cowboy boots right between Andrew and his pump. She yanked the whole thing right out-tegaderm, needle and all!! We had had about 3 min left of the infusion but he still needed to be reaccessed to flush him out. Boy were we hot with her. After that he wears the little pump and IVIG bag on his back in a little back pack! It works like a charm and he can go anywhere. I hope you recover from your rough day. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, July 29, 2004 3:30 PM CDT

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Hello Alli and family. I hope you start feeling better, and I also hope you are able to learn to pedal soon so you can ride that bike all over the place!! Take care.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas - Tuesday, July 27, 2004 7:47 AM CDT

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Dear Miss Powder Puff,
I hope you and your Mommy are feeling better soon! Big Hugs! ~Jessica

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USofA - Monday, July 26, 2004 5:40 PM CDT

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Hi Alli and Ashley! I sent you both a card today. $$$$$ for you to spend on summer fun!

Love You, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, July 26, 2004 10:48 AM CDT

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Hi All, Have a great Sunday!

Hugs to All
Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, July 25, 2004 10:20 AM CDT

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Hi long haired girl! Alli...your hair is getting so long!!!! I bet you love to brush it. Hugs and kisses from your Nana!
Janelle Schumacher <shoe111550@yahoo.com>
- Saturday, July 24, 2004 4:17 PM CDT

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Dear Jennifer & Allison,
Thank you so much for the beautiful pocket angel and card with Allison's picture! The angel is with us at all times and Allison's picture is now a permanent ficture on my computer. We are almost checking into the hospital (Tues. the 27th is the big day). You are so sweet to think of us and we hope we can meet one day soon! With many thanks and warmest wishes, Claudina & Caterina Marcus (Durham, NC)
Claudina B Marcus <claubonetti@aol.com>
Durham, NC - Friday, July 23, 2004 5:47 PM CDT

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Know I haven't signed in for a while, and realize it's a few days late, but I hope Ashley had a wonderful and fun birthday. Take care.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas q - Friday, July 23, 2004 8:48 AM CDT

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Yea! I am finally back with a computer!! Whew! A long dry spell. A very good morning to my girls! I miss you all and am counting the days till I see you.

Hugs, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, July 23, 2004 5:25 AM CDT

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Hello Pink Petunia!!
I was thinking about you and Ashley today and wanted to wish your big sister a Happy Belated Birthday! I hope you had fun at the party. You are in my thoughts always…Love you Bunches & Bunches! ~Jessica & Donald Duck
www.mpsforum.com

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN US of A - Thursday, July 22, 2004 11:09 AM CDT

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Wow! A 9 year old!!! Ashley, remind your Mom how is was when she was 9 years old and helping with her little sister! How I remember those days....!!!! :-)
I can't wait to get back to ND and see you all. I miss playing with my babes!! Take care all and we'll see you in about a month.

Love to All, Nana
janelle schumacher <shoe111550@yahoo.com>
- Thursday, July 22, 2004 10:05 AM CDT

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HI Alli,

I love the photo on the front. Tell Ashley HAPPY BELATED BIRTHDAY!!! Sorry I was two days late. :-(

I hope you got to celebrate with lots of fun and ice cream!

Love,
Patty and Jesse
MPS Forum members
http://www.caringbridge.org/md/myjesse
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Wednesday, July 21, 2004 9:05 AM CDT

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Happy Birthday Ashley!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Love and Hugs,
The Slawson Gang!! <TLSlawson@aol.com>
- Tuesday, July 20, 2004 7:56 PM CDT

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Happy Birthday Ashley. Congratulations on being 9 years old that's really cool. Next year you'll be in the 2 digits category (10).

And congratulations Alli for lasting a whole week without pull-ups, that's a big accomplishment.

God Bless.
France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Tuesday, July 20, 2004 3:20 PM CDT

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Happy Birthday Ashley!
Lisa Post <LMPOST@cox.net>
- Tuesday, July 20, 2004 7:41 AM CDT

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Yea Alli. Congratulations on being such a big girl and not wearing any pull ups for a whole week. I hope you are having a great summer. Take care and God bless.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas - Sunday, July 18, 2004 9:58 PM CDT

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I loved talking to you on the phone today Ali! Your picture on the forum and your voice on the phone remind me so much of Kaity we she was your age!
Aunt Rhonda <rjapril@insighbb.com>
Jeffersonville , In USA - Saturday, July 17, 2004 6:51 PM CDT

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Just wanted to say that we will be in Minneapolis the same week...Tommy for his 5 yr. post BMT and Kaitlyn's 1 yr....I am sure we will run into one another....Susan
Susan Ries <Jagators24@msn.com www.caringbridge.org/page/tommyries>
Jacksonville, FL - Saturday, July 17, 2004 9:30 AM CDT

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Hi Jen and Ali- Mason and I were wondering if you were going to the Clinic fun day at Raging Rivers. Let us know! I don't think we will be at the clinic much on Wednesdays anymore, so we probably won't see you until then. Take care and good job on the potty training!
Mindi and Mason Mason's Page <tmsteckler2@bis.midco.net>
Bismarck, ND - Friday, July 16, 2004 3:33 PM CDT

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Wow, what a big girl!! Andrew wears big boy pants during the day but he is still in diapers at night and they are always SOAKED!!! I don't know of anything to do about that. I guess we will just have to wait. I sure don't want to get up in the middle of the night to change sheets every night. I am glad things are going so well with Allison's infusions. I know it must be a long time to be tied down. We are still doing IVIG once a month and it lasts for hours and I dread that day. It is nice though, the nurse hooks it up to his port and then we stuff the whole thing in his little back-pack and off he goes. No body has to tag along behind him like we used to. It makes me nervous when he jumps up on the couch on his tummy with his port accessed though. We do keep a close eye on him but he can go outside and everything. Give Allison a kiss for us and enjoy the summer. Love,Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, July 16, 2004 7:37 AM CDT

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Hi Jenn!
Stopping by to say hello. Great job Alli with the potty training!
Lisa Post <LMPOST@cox.net>
- Friday, July 16, 2004 7:26 AM CDT

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Hi Ali and Family! I just love the picture of you and Ashley, you're both sooooo cute!!! Sorry to hear about your car accident, but I'm glad you didn't feel sore afterwards.

Take Care!
Kris and Kraiggy
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Tuesday, July 13, 2004 7:42 PM CDT

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Hi Babies! I am finally at a computer!!!! (the laptop I have crashed) CUTE picture...and to think that Ashley will be 9 years old soon. I have a present coming for both (how do you send just one present to just one Granddaughter??.
Talk to you soon!

Hugs and Kisses, Nana
janelle schumacher <shoe111550@yahoo.com>
- Tuesday, July 13, 2004 10:59 AM CDT

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Glad to hear you and Allison came out all right. It must have been scary. The picture of Alli and Ashley is so cute. And way to go Alli for being completely toilet trained that is quite an accomplishment. God Bless.

France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Monday, July 12, 2004 9:48 AM CDT

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Hello,
I just wanted to let you know that you are all in our thoughts and prayers. Our second daughter, Caterina, age 13 months, was diagnosed with Hurler's June 9th. We are at Duke U. Medical Center now undergoing the preparations for stem cell transplant. I hope we can meet one day and have our daughters play together. I wish Allison all the best with ERT. You can visit Caterina's website at www.caringbridge.org/ny/caterinamarcus
With our warmest regards, The Marcus Family
Claudina Bonetti Marcus <claubonetti@aol.com>
New York, NY - Saturday, July 10, 2004 3:43 PM CDT

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I like the new pictures! Allison is so cute.
Hope she is doing just fine.
Hugs from Norway.
Vibeke Hovd <vibekehovd@hotmail.com>
Near Trondheim, Norway - Saturday, July 10, 2004 1:42 PM CDT

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hi jen and ali
sorry to hear about the car accident and i am so glad that you all are ok.i am so glad to hear that ali is doing so great it makes me feel so much better about katilynn.sorry i havent signed in for a while i have had so much going on.but i do much better.glad to see ali is not wearing pull ups katiynn hasnt had a bottle in almost a week and she is sleeping all night now since i moved my bed beside hers i dont even have to pat her butt to get her to go to sleep a full night sleep is the best thing since sliced bread lol.so next step for us is potty training i dread it so bad.well i will go for now tell ali keep up the growing and the big girl stuff give her a hug and a kiss for me.
hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, July 10, 2004 9:57 AM CDT

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I love the new pics!! Keep them coming! :)
Jennifer <jgarrard04@comcast.net>
Petal, MS USA - Friday, July 9, 2004 9:15 PM CDT

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I love the new pics!! Keep them coming! :)
Jennifer <jgarrard04@comcast.net>
Petal, MS USA - Friday, July 9, 2004 9:14 PM CDT

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Are you still sore??? I forgot to ask that yesterday :( I get to meet Kim today! YEAH! I will call when I get home. Give Alli a big hug from me. I'm missing her. I think we need a trip to CA!!

Love and Hugs,
Tami ( www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com>
- Friday, July 9, 2004 9:53 AM CDT

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Hey this is Jennifer, Nathan's mom. Thanks for sigining his book. Allison is a doll and I hope that things continue to go well with her. If you ever wanna talk just let me know!

http://home.comcast.net/~jgarrard04/wsb/index.html
Jennifer <jgarrard04@comcast.net>
Petal, MS USA - Thursday, July 8, 2004 2:32 PM CDT

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Hello Little Rose Bud!! I just wanted to say hello and tell you that you were on my mind. I know today was ERT day and I hope it went well. Be checking your mail in about one week (or less)! There’s something special coming for you and Ashley this time! Mommy should be getting her package first…then you!
Love you Bunches and Bunches,
Jessica
www.mpsforum.com

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USofA - Wednesday, July 7, 2004 5:39 PM CDT

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Hi Allison,
My name is Jaime and i just found your caringbridge page. I hope you and your family had a nice holiday weekend and i hope you are having a good summer.
Jaime <Jaime13042@aol.com>
NJ USA - Wednesday, July 7, 2004 3:02 PM CDT

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Happy 4th July
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, July 4, 2004 3:09 AM CDT

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It was fun to see you again at the clinic on Wednesday. Thanks for sharing your M&Ms! I have been casting magic spells all day today with my magic wand, but my mom finally made me turn the sound off because she was about to lose her marbles. I didn't even know she had any marbles! See you next week ;)
Mason and Mindi Mason's Page <tmsteckler2@bis.midco.net>
Bismarck, ND USA - Thursday, July 1, 2004 9:02 PM CDT

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Lucas and I were checking for updates. He saw her picture and said "That is my new friend Alli. I picked her a flower and I love her. I miss her sooo much and she needs to come to see me...I love her sooo much." Out of the mouth of children. Please come stay with us again. We had such a nice time. The girls talk about Ashley all the time. I'll call you soon Jen. Tell everyone hello.
Chad, Jane, McKenzie, Haydn and Lucas Becker <Mckaydas@aol.com>
Andover, MN USA - Monday, June 28, 2004 10:00 PM CDT

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Hi All! Checking in to read all about the week. Sounds good! I expect Alli is playing just like all three year olds...keeps a Mother hopping!

Hugs! Love, Nana
janelle schumacher <shoe111550@yahoo.com>
- Monday, June 28, 2004 12:40 AM CDT

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Great news, I so happy Allison is getting better.
Love Tina,Pdaraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Saturday, June 26, 2004 4:13 AM CDT

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Hello Allison and Family:
My name is Jenna and I came across your website. You are a very beautiful girl, with a smile that shines. You have a lot of courage, and determination, because you are so young, yet you never give and keep on fighting! You are an inspiration to others. I will be praying really hard that you haven't come up with something that is very serious. I have a rare bone disease, and I have a difficult time with my knees as well. So I can relate to how Allison is doing. I love making new friends and I will come back again to say hi.
www.caringbridge.org/canada/jenna

Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Tuesday, June 22, 2004 1:38 AM CDT

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I just had to check in and see my little flower. :) I sure hope your knees are feeling better. Hugs for you Miss Ally. Love you! ~Jessica
Jessica Wellman <jessicalw@earthlink.net>
Corydon, IN USA - Monday, June 21, 2004 8:58 PM CDT

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I really do love that picture with the dandelion, it's a winner. Ally, I hope you feel better real soon and get back to climing all over the place.

God Bless.

France Albert <france.albert@gdcanada.com>
ottawa, On Canada - Monday, June 21, 2004 7:18 AM CDT

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Hey Babies! Hope all is better today and this week starts out better than the last one!!? My thoughts are always with you Jenn.
Hugs and Kisses to Alli and Ashley. I miss you all and send my strength.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, June 20, 2004 7:21 AM CDT

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I hope Allison feels better soon and whatever it is goes away and never comes back. Jennifer you are one incredible women!!

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk / www.melroseroad.co.uk>
London, UK - Friday, June 18, 2004 3:17 PM CDT

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Hi Restemayers!
I have been meaning to check-in here for the last month, but the days just seem to slip away. Still, better late than never, I wanted to stop by and let you know what a pleasure it was meeting your family in Minneapolis! Allison is such a happy and vibrant little lady who certainly knows how to bring about smiles from those around her. I hope this little "bug" that is ailing her is short lived ... for Allison's sake, as well as poor Mom! Have a happy summer!
All my best,
Amy White <www.caringbridge.org/page/susannah - kkwhite@ucsd.edu>
San Diego, CA USA - Friday, June 18, 2004 10:01 AM CDT

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Hi Jen and family. Here's hoping that Alison starts to feel better really soon so you can spend some fun time together during the weekend ahead.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas - Friday, June 18, 2004 3:21 AM CDT

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Jenn,
I don't know how you do it!!! You're amazing! Taking care of all your daycare children, especially when Ali is not feeling well. Please give Ali big hugs from Ty and me. I will be praying that Ali's pain subsides and she is running and climbing very soon.
Love,
Kim Downham and Ty
Kim Downham <jdownham@earthlink.net>
TX - Friday, June 18, 2004 0:25 AM CDT

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Whoa, Jennifer! You had your work cut out for you the last few days! I hope Alli is feeling better now. Sounds like some kind of virus. Hope it is a short one!
Lisa Post <ltjpost@cox.net>
- Thursday, June 17, 2004 10:44 PM CDT

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hi jenn and ali
ali sorry that u have been sick hope that u get well soon and hope that the pain that u have goes away as fast as it came.well i just wanted to check on you guys to see how things are going.get well soon ali lots of hugs and kisses are coming your way.love kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, June 17, 2004 3:24 PM CDT

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Hi Jenn & Allison, sorry your having a bad week Allison, I hope that your feeling better real soon. Cade has been sick the past 4 days, high temp, ear & throat infection, back on medicine...port blood draw came back fine so it must be a bug going around. I hope you can get into the dr. soon to find out about Allison's knee pain, Cade shows some storage build up on his knee caps but doesn't seem to bother him. Keeping you all in my prayers.
Love,
Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Wednesday, June 16, 2004 10:03 PM CDT

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Hi Girls, Weather here in Mississippi is HOT!! (I love it!)
Painting and working with your Nana Jenn. Having a great time! Miss you all and can't wait to see you. Hope you can make it here in Aug.
Hugs and Kisses!! Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, June 15, 2004 6:08 PM CDT

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Hi Girls...I am in Seattle visting John's family. He has a whole new family for us all to grow to love. Ashley-I met John's Grandson...you will like him! (age 10)
Missing you all and thinking about you each and every day.
Back to Mississippi tomorrow. I'll call on Sunday.

Love to you All. Nana
janelle schumacher <shoe111550@yahoo.com>
- Wednesday, June 9, 2004 11:02 AM CDT

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Great pic of all "the girls"!!! I was especially thrilled to see my little buddy Julia on your front page!
Lisa Post <ltjpost@cox.net>
- Wednesday, June 9, 2004 9:42 AM CDT

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Hello, all. I finally have a day off from work, so I'm checking in on the little ones! The new pictures are adorable, Jen, they literally made me laugh. That one with Allison and the dandilion is a classic - I think every child has a picture just like that growing up. I am anxious to see the kids again soon - Jess keeps me pretty updated with whats going on in their lives, which I always enjoy hearing about. Anyway, just dropping you guys a line, please give the girls a big high five for me. Take care,

-jb
John Bennett <jb3_42@hotmail.com>
Maple Grove, MN - Tuesday, June 8, 2004 9:04 AM CDT

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Hello Jennifer and family. Signing in to say hello from Texas and to let you know that I am praying for you. Take care and have a great week. God bless.
Jennifer <charay913@yahoo.com>
Wichita Falls, Texas - Monday, June 7, 2004 10:23 PM CDT

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Allison I can tell you made some new friends and enjoy playing with them. You have sush a cute smile and I know when I make you laugh I can see that smile!!! I can tell your enjoying your summer swimming. See you sone!!!
Cassidy Kraft <5 Krafts @ bis. midco. net>
Bismarck, ND U.S. - Monday, June 7, 2004 5:11 PM CDT

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It is so wonderful to see our beautiful MPS children all together having fun. I don't know Jessica but I recognize Maddy. She sure has grown. They are all turning into such little ladies. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Monday, June 7, 2004 1:20 PM CDT

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Hi Allison! I'm just stopping by to say hi and let you know that I'm thinking of you! I hope you have a great weekend! God bless and *warm hugs* ><>†<><


http://lightingchildrenslives.org
My website!!
*Jennifer C* from Lighting Children's Lives <jenniferc@ilovetocolor.com>
Eugene, OR USA - Saturday, June 5, 2004 5:51 PM CDT

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Mason is so sad that he wasn't at the clinic on Wednesday to share those Cheetos! I think the next time we see you guys, Mason should be done with the steriods, so we can talk about something other than food! Have a great weekend:)
Mindi and Mason <tmsteckler2@bis.midco.net>
Bismarck, ND - Friday, June 4, 2004 10:38 PM CDT

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Hi Girls! Water, water everywhere here in Fargo! Have a great Memorial Day.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, May 31, 2004 7:21 AM CDT

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Hi All, Heading out to Bismarck at 5:00am tomorrow...see you all for breakfast!!

Love,Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, May 28, 2004 6:42 PM CDT

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Hi Girls, I had my retirement party last night. Two more days of teaching and I'm done!!! I want to come to Bismarck on Sat. with Lois. There is the state track meet there on Sat...will you guys be home?

Love, Me
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, May 25, 2004 9:33 PM CDT

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Hi from Grand Forks, ND. I am so happy to hear how well Allison is doing. One whole year of ERT already! WOW! Great job Allison! (Great job Mommy, Daddy, and Ashley too!) Cute pictures!!! Love and Hugs!
Kara Johnson <kjohnson@medicine.nodak.edu>
Grand Forks, ND USA - Tuesday, May 25, 2004 10:27 AM CDT

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Hi Alli!
What a beautiful girl you're. I' ve seen the "flower"-picture, and I love it. Hope you are doing just fine.

Hug from Vibeke
Vibeke (Vibe in the forum) <vibekehovd@hotmail.com>
Skaun, Norway - Tuesday, May 25, 2004 9:13 AM CDT

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Dearest Alli,
We would like to send you our warm thoughts from cold Norway. Yes it is far away from you but a beautiful place. Benjamin has just started treatment and he will have his 7th treatment on Thursday. To hear all the good news from you makes us very happy.

And congratulations with 1st year of treatment.
Happy Enzyme Day!!!

Love Benjamin, Rita and Beejan
Rita H barkhodaee <riba@nhst.no>
Stavanger, Norway - Tuesday, May 25, 2004 1:46 AM CDT

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Happy Last Week of school!!!! Let the summer begin...now if only the weather here in ND would believe it's summer.
Have a great last week Ashley and hugs to all!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, May 23, 2004 12:19 AM CDT

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I love the new pics of the girls! That's so sweet that Allie's doctors and nurses had a party to celebrate her ONE year of ERT! She looks so happy!
Hugs to my girls!

Jessica Schumacher <jshu21@msn.com>
Eau Claire , WI USA - Sunday, May 23, 2004 11:46 AM CDT

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Happy One year of Growth Alli! Those words mean so much when one year ago things looked so hopeless. You are so special to so many. Keep up the progress and as all 3 year olds know...keep playing and playing!!
I Love You, Nana
p.s. Thank you Nurses. I have seen you in "action" and your kindness is the stability that smooths the weekly journey for Alli and Jenn.
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, May 20, 2004 2:08 AM CDT

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What dolls! What a sight with nature!! Sounds like the trip was a fun time to visit and play. Good for all of you for going and participating. Fun to see you all on Sunday. I got lots of hugs and kisses!!!!!!!!!!!

Love to you....Nana

Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, May 18, 2004 6:22 AM CDT

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Hey there Jenn!
So good to see your smiling girls! They look so happy! I'm glad that your trip to the cities went well and the girls had fun in the water. Summer is coming fast and school is almost out. I bet your 2 are ready for summer play.
Lots to love to all of you!
-Rachel Cremer
Rachel Cremer <isaac@hotsprgs.net>
Hot Springs, MT 59845 - Monday, May 17, 2004 2:25 PM CDT

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That is the most beautiful picture in the world. I love her smelling the flowers. I check on you all the time but I haven't signed (I know that is bad) I couldn't resist when I saw that face. It is soooo sweet. I have two little boys and I scrapbook. I take hundreds of pictures but I can never catch my boys doing something like that when I have a camera around. You should be so lucky!
Carol Burgess <carol_burgess@kerrgroup.com>
Conway, NC USA - Monday, May 17, 2004 12:29 AM CDT

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That is the most beautiful picture in the world. I love her smelling the flowers. I check on you all the time but I haven't signed (I know that is bad) I couldn't resist when I saw that face. It is soooo sweet. I have two little boys and I scrapbook. I take hundreds of pictures but I can never catch my boys doing something like that when I have a camera around. You should be so lucky!
Carol Burgess <carol_burgess@kerrgroup.com>
Conway, NC USA - Monday, May 17, 2004 12:29 AM CDT

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Jennifer and Family, It was an honor to meet your family this weekend! Your girls are just adorable, I loved Ali's little Strawberry Shortcake outfit. I'm glad they won those tickets, I hope that Ashley was able to get that prize she had her eye on. I am really glad I was able to attend the meetings over the weekend and meet so many wonderful families. Thank you for giving us all some insight on your experiences with ERT, I'm glad that I was able to hear your talk Saturday afternoon. Take Care!
Kris Klenke <kris@mpssociety.org www.caringbridge.org/il/kraig/>
Worden, IL - Monday, May 17, 2004 10:37 AM CDT

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Jennifer,
I'm so thrilled you got to meet my little buddy Julia and her great parents as well as the other families! I can't wait to get the details from Patty!
Lisa Post <ltjpost@cox.net>
South Windsor, CT - Monday, May 17, 2004 9:22 AM CDT

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hi guys
glad u had a safe and fun trip.glad u returned home safely.sounds like u had a great time.love the new pictures.well i will be back to check on u all soon.lots of hugs and kisses and lots of love kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, May 17, 2004 8:32 AM CDT

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Have fun in MN. I've heard through the grapevine that it is very informative! I love the fact that the Hurler families have a chance to meet!
Lisa Post <ltjpost@cox.net>
- Saturday, May 15, 2004 5:15 PM CDT

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I know that you all are in the Cities today but I just wanted to share in your excitement! I know meeting other families will be such fun. It is always great to meet the internet friends!!
I hope the timing is right to stop tomorrow on your way back. I want to hug and kiss the girls!!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Saturday, May 15, 2004 6:31 AM CDT

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I hope you have a great trip.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Friday, May 14, 2004 1:37 PM CDT

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You have such beautiful children! Sometimes, I come here, not just to read the update, but just to look at Allison's sweet face! I look for Reese in all my little Hurler babies and I find bits and pieces of him in all of them! Please give Allison a hug from me and an angel kiss from my little Reese!
Shawn, Taylor, & ^^REESE^^ (www.caringbridge.org/nc/reesecup) <selboc@aol.com>
Winston Salem, NC - Wednesday, May 12, 2004 7:41 AM CDT

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Rainy Day here in Fargo. We had a huge rain storm all around here yesterday and last night. Hope you got some rain as well. It is needed on the Western part of the state! Hugs to Alli and Ashley!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, May 12, 2004 6:06 AM CDT

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I'm stopping by to pray that Allison will continue to do well, and that your Mother's Day will be especially blessed.
Stephanie and RachelJoy <sstrom@quik.com>
- Saturday, May 8, 2004 7:42 PM CDT

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Happy Mother's Day!!!!!

I hope you have a wonderful day!!

Love and Hugs,

Tami (www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Saturday, May 8, 2004 10:49 AM CDT

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HAPPY MOTHERS DAY JENN AND JANELLA
KATHY AND KATILYNN PRESTON <KATILYNNSMOM@YAHOO.COM>
TOMAHAWK, KY USA - Friday, May 7, 2004 10:21 PM CDT

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Wow Alli! Number 50!!! Way to go Girl!!!!! We have been so lucky so have such success and I will be sending out prayers for all who need them!
Thanks Jenn for keeping us informed about others.

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, May 7, 2004 3:20 PM CDT

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Hi Jennifer and Family!
Just wanted to let you know that I visited your web site and will continue to do so. Your girls are so lovely! And ... Jen, you are a great Mom and advocate for them!
Welcome to Family to Family and thanks for taking the time to become a part of us!
Vivian Drees, Family to Family Network <NDF2F@medicine.nodak.edu, vdrees@juno.com>
Grand Forks, ND USA - Thursday, May 6, 2004 1:35 PM CDT

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congrats on the 50th treatment.we are saying our prayers for niki and all the mps babies.i am glad all is well and will be back to check on u guys and please have a safe trip and have fun meeting new familys and learn alot of stuff for us.hugs and kisses kathy and katilynn
kathu and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Wednesday, May 5, 2004 10:20 PM CDT

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Hi Girls! Just checking in to say hello! Happy Mother's Day to you Jenn! Missing you all and hope to see you soon!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, May 5, 2004 12:01 AM CDT

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Allison looks wonderful. I am so glad that you are able to attend the MPS conference. We also were invited but of course unable to attend. Please keep us informed of the new information. Thank you for your continuing support, Niki is still stable and making baby steps.. Thanks again Love Denna and Niki
Denna <draee67@yahoo.com www.caringbridge.org/il/niki>
St. Anne, - Monday, May 3, 2004 8:47 PM CDT

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Allison looks so good, I'm so happy to hear that ERT is going so well. I'm planning to attend the MPS Patient Advocacy meetings on the 15th also, I hope we will be able to meet then.
Kris Klenke <kris@mpssociety.org www.caringbridge.org/il/kraig/>
Worden, IL - Sunday, May 2, 2004 2:26 PM CDT

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WOW, I LOVE THE NEW PICTURE. ALLISON LOOKS SO FULL OF LIFE!!! HOW IS THE ERT GOING??? I WANTED TO GO THE THE SYMPOSIUM BUT MY HUSBAND WILL BE OUT OF TOWN THAT WEEKEND AND UNAVAILABLE TO CARE FOR AARON. MAYBE WE WILL MEET UP AT DISNEY LAND IF YOU ARE GOING!!! GIVE ALLI A BIG HUG FROM US!!!!!!!!!
TRISHA ATHY <AARONSMOM1027@SBCGLOBAL.NET>
- Friday, April 30, 2004 2:24 PM CDT

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That new picture is so good. I guess attending Ashley's school carnival was worth it!! Cool day here today...one day 90 the next 34!! (only in ND!!)
Have a great weekend All!!

Love, Nana
janelle Schumacher <shoe1115550@yahoo.com>
- Friday, April 30, 2004 1:25 PM CDT

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Love the new picture. I think it's great that you can go to that symposium. God Bless.

France <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Thursday, April 29, 2004 8:05 PM CDT

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HI GUYS I THOUGHT I WOULD STOP BY TO CHECK ON EVERYONE SORRY ITS BEEN A WHILE JUST BEEN REAL BUSY HERE SO I HOPE ALI WILL GET BETTER SOON AND WONT NEED ANY MEDS SO ALI GET BETTER GIRLFRIEND AND LOTS OF HUGS AND KISSES COMING YOUR WAY
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Wednesday, April 28, 2004 12:03 AM CDT

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Hi Girls! The weather here is finally HOT! YEA!!!! I am checking the sites today and of course I check Alli's first!

Hugs and Kisses, Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, April 27, 2004 3:51 PM CDT

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Hey I hope your weekend is GREAT!!! Please do me a favor and come up with a list of topics for the BMT/ERT meeting! Since you are ERT what would you want to know you or would like learn about from the ERT conference? Post on the forum or my site or email or just else I will call you on Tuesday! LOLOLOL

Love and Hugs,
Tami ( www.caringbridge.com/ca/slawson ) <tlslawson@aol.com>
- Thursday, April 22, 2004 6:40 PM CDT

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I think Jenn that this is the longest you have gone without an update. I know all is well and I so enjoyed both girls last weekend. That Alli has such a twinkle in her eye as she explains "things" to me. I hear your kind words out of her mouth all the time. You are such a wonderful Mom! Your girls are lucky and your daycare kids are blessed!

Love, Mom
Janelle Schumacher <Shoe111550@yahoo.com>
- Tuesday, April 20, 2004 11:52 AM CDT

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Just checking in. Glad things are going well.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Monday, April 19, 2004 1:42 PM CDT

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Happy Friday! I will be there between 6:30-7:00 tonight. I am running a bit behind this morning so I need to stop back here today before getting on the road. Don't feel like you have to hold supper. See you all later!!

XXOO
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, April 16, 2004 8:09 AM CDT

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hi just to stop by to see how you all are and hope that u all had a great easter.ours was ok we were on the road to cincinnati but it was worth it for katilynn well guys i will stop by soon to check back in on u all hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, April 15, 2004 10:01 PM CDT

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Hi Allison and Mom,

Just a little hello. Wishing you well and enjoying how great you look. Hope you had fun with the Easter Bunny.
Maria & Tatiana <Mariaetuckett@aol.com caringbridge.org/ut/tuckett>
Murray, UT US - Thursday, April 15, 2004 4:37 PM CDT

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Hi Girls, I "found" a new dollar store here and did I have fun picking up a few new things to play with! Alli, I have some Barney purple soap foam for your bath! And Ashley, I got some great silly stray sting to decorate your outdoors with!!! Funny how all that goes...everything is just a dollar and before you know it, there goes another $35.00!!! (but they were ALL a deal!)
I will be in Bismarck around 6:30pm tomorrow night for a meeting on Sat. See you all then!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, April 15, 2004 7:42 AM CDT

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Hi from Montana! Just checking up on you guys! So good to hear that Alli has adjusted so well to the Wed. routine. Keep it up! The pictures are great - makes you feel a bit closer.
Rachel Cremer <isaac@hotsprgs.net>
- Wednesday, April 14, 2004 1:09 PM CDT

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To All who check in to read about Alli! I want to thank you all again from the bottom of my heart-- about all of your check-ins for my Granddaughter. Your click of a button sometimes is the glue that holds us all together in our changing worlds that sometimes pulls us down and apart. I know from the families that I check in to that sometime a kind work, an internet hug, or a increase of the numbers into the website makes the day!
I thank you all for your support as we love our babies and hold on to any hope we can. God gave us this child and we do not want to give her back!! We just want to make her whole and let her live life happily.

Peace, Janelle (Alli's Nana)
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, April 12, 2004 4:04 PM CDT

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Great work. I'm sure a lot of families are very greatful for all the efforts you've put in. And it paid off. God Bless.

France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Monday, April 12, 2004 7:32 AM CDT

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Happy Easter!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, - Sunday, April 11, 2004 4:48 PM CDT

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Hi Alli!! Love the new pics! You look as cute as ever!! Max and everyone says hi. Hope to talk to ya soon.
Paul & Max Forand (www.caringbridge.org/nj/maxforand) <forandkerrigan@comcast.net>
Millville, NJ - Friday, April 9, 2004 2:39 PM CDT

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Hey Sweetie,

Great News! Thank you so much for all your hard work for all our MPS babies. If you get a chance to talk today, give me a call or just look at my update :( Have fun with your Mommy this weekend. Give her a big hug from me! Have a very happy Easter!

Love and Hugs,
Tami ( www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, - Friday, April 9, 2004 9:48 AM CDT

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Hi Jen & Allison, just wanted to let you know I stopped by, love the new pictures. Hope all is going well with Allison. Cade is fighting a bad cold, back on antibotics. Happy Easter to all of you.
Love,
Nikki & Cade Morrissey
Nikki Morrissey <slimpikens1@yahoo.com www.caringbridge.org/il/cademateo>
Kewanee, Il USA - Wednesday, April 7, 2004 10:47 PM CDT

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I just can't stop checking in to see those beautiful smiles! Can't wait till I see you all again!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, April 6, 2004 10:19 PM CDT

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I always love when you post new photos- your girls are beautiful! A person can't help but smile when they see Allison's big smile! Thanks Alli for making me smile!
love, Cathy Peters <www.caringbridge.org/canada/isobel jacon@shaw.ca>
- Monday, April 5, 2004 9:51 PM CDT

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Good Morning Girls! It is a beautiful day here in Fargo and I know you guys will have a great day as well! Thinking of you all and looking forward to giving you the fancy beads from New Oleans!!

Hugs!!! Love Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Monday, April 5, 2004 9:54 AM CDT

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Jenn, Those new pictures only bring smiles to all who take a look! How cute of both girls!!!! I just got back from Mississippi. Hard to come back after 80 plus temps. I guess ND has a ways to go before we even get green grass!!
Hugs to the girls!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Sunday, April 4, 2004 10:08 PM CDT

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Hi Alli! Just checking in on you and I'm pleased to see you looking so cute and spiffy in your warm weather clothes! Not too much longer and you'll have alot more days like that!!
Lisa Post <ltjpost@cox.net>
South Windsor, CT - Sunday, April 4, 2004 8:18 PM CDT

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Hi glad to hear everything went okay
carla <missionfromgod2001@yahoo.com>
Newburgh, Indiana usa - Friday, April 2, 2004 12:18 AM CST

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Hi there cutie. I'm praying that tomorrow is a much better day for you.
Stephanie and RachelJoy <sstrom@quik.com>
- Thursday, April 1, 2004 9:57 PM CST

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Hi Alli and Jenn, I am in Mississippi recouping from my foot surgery! My Mom says "hi"!!!! Miss you all but this warm weather (80's) is easy to take!!

Love, Nana
janelle Schumacher <shoe111550@yahoo.com>
fargo, nb usa - Sunday, March 28, 2004 2:44 PM CST

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hi ali and jennifer
i am glad ali is feeling better and that her treatment went well.katilynn had her treatment friday and everything went great so i will check back in later hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, March 27, 2004 8:05 PM CST

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hi ali and jennifer
i hope everything is going good was worried since u havent updated ur page let me know how u guys are.hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, March 23, 2004 10:22 PM CST

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Jennifer & Alli,
I hope your doing well. Alli is absolutely adoreable.
Thanks for visiting Christophers page. When I saw your entry, it prompted me to update the page. I also added a picture.
Thank you.
Carrie (The Rea Family} <carrierea@copper.net>
Floral City, Fl U.S.A. - Monday, March 22, 2004 10:43 AM CST

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Checking in on Alli. Hope she is feeling better today!
Lisa Post <ltjpost@cox.net>
- Saturday, March 20, 2004 5:15 PM CST

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im so sorry you are sick allison you have been doing so good. when i look at your picture you look so big i hope katilynn start growing soon. she get to come home from hosp tommer she wont get to take her ert next week . hope you are feeling better.
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Friday, March 19, 2004 10:27 PM CST

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Hi Ali!
I just visited your web-site and I enjoyed seeing pictures of you so much! You remind me of my daughter Kaitlynn who looked a whole bunch like you when she was little! I hope you are feeling better today. Your Mommy wrote you had a belly ache and your ears hurt. I know that is no fun at all. Be good for Mom and make sure you do all your infusions so you will get better soon!
Xoxo’s
Jessica & Kaity
http://www.mpsforum.com

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Thursday, March 18, 2004 10:46 PM CST

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Oh Baby Doll! I have just the thing(s) to make you better! I have some Easter baskets filled to the brim (no candy!!) waiting to be opened by a 3 year old's hands and an eight year old's hands!!! I can't think of anything that would make you feel better! Can't wait to see you all on Sat. Bring warm weather and get ready to hit my school carnaval for the afternoon. GEE? Will that make you feel better too? LOL!!!

Hugs and Kisses, Love Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, March 18, 2004 6:26 PM CST

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Hi Jen & Allison, sorry your not feeling good, the medicine should make it better soon. Cade has been having sinus problems also, the drs. around here just keep saying it's the disorder, and only we would have a dr. for infusions that doesn't believe in antibotics..just added drs. visits to get the meds. for him. ERT continues to go well, no luck getting the dr. to do more than one test while Cade is under for his MRI. Thinking of you and praying your better real soon.
Love,
Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il. USA - Thursday, March 18, 2004 3:06 PM CST

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katilynn is doing a little better today the docter is going to check her for rsv. she still sleeping a lot and not eating much. the hosp around here dont have much room so thay have to put katilynn in the room with kids who has the flu or rsv or pneumonia if she was in a better hosp she would get better faster. her oxygen lev yesterday was down to 60 but is going back up today think god.she is dehydrate to . her docter know how easy it is for her to get what every the other kids has in her room but he said thay dont have any private room left. keep praying she will get better fast and get to come home befor she get something else.katilynn grandmama
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Thursday, March 18, 2004 0:07 AM CST

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Hi Allie and Ashley!
I can't wait to see you on Saturday !!!!!!!!!!!!!!
Hope your infusion went well today Allie, and Ashley--be nice to your MOM!!! :)
See you soon!
jess <jshu21@msn.com>
eau claire, wi - Wednesday, March 17, 2004 12:00 AM CST

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katilynn is back in the hosp again her temp is back up 101 to 102 and she stop eating again thay are going to keep her in the hosp ontell thay take her back to cincinnati on sunday. please pray for her .god bless you all .frances
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Tuesday, March 16, 2004 10:30 AM CST

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good morning Ali and everyone!!!
Thats great news about you growing!!! Austin has grown over a whole foot since his transplant!!!
he was also off the charts up until about 12-14 months of age for height,weight and head size! he then went to the bottom of the chart for height and weight (head has always been way up there!!!) thats to make room for all his smartness!!! ha ha ha
he is now back at about 50-60% percentile so we are thrilled! I am so happy to hear that everything is going so well with the ERT !! Looking forward to more great news
and I hope it warms up out there in ND soon!! I think it is supposed to get up to 50 something today but back down to the 30's tomorrow and a possibility of wet snow too! yuck, i am waiting for spring to arrive!!
Talk to ya soon
carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc>
philadelphia, pa usa - Monday, March 15, 2004 9:14 AM CST

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Hi All, Did you talk to Aunt Jessica as she turned 25 yesterday? Hard to belive that my baby is getting older!!
The wind is blowing here really strong but the temps are suppose to be in the 30's!! Temps like that all week so hopefully some of this snow will melt.
Have a good start to the week!

Hugs and Kisses!!
Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, March 14, 2004 10:35 AM CST

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So glad that Allison's infusion went so well. I'm very thankful that she hasn't had a reaction yet. I am so hoping that Evline will be blessed the same. The bone marrow doctor is talking about discussing the possibility of continuing ERT with the geneticist along with the bone marrow transplant because the BMT doesn't help the bones as much and Evline has a very prominent gibbus on her back. Allison is a beautiful little girl. May GOD Bless.
Cheryl www.caringbridge.org/ky/evline <evlinethomas@yahoo.com>
Evarts, KY USA - Friday, March 12, 2004 2:18 PM CST

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I clicked the wrong button and sent the last message instead of correcting it!!! Sorry! Hope you can figure it out...now I'll let you guess!! LOL
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, March 12, 2004 7:48 AM CST

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TFIF Girls! I am now gathering all my presents for your visit next weekend. Rmeember that I have Lion King 1 1/2 for you both! I am so looking forward to seeing you all. Please bring warm weather with you!! lol

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, March 12, 2004 7:46 AM CST

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I have to tell everyone about the BEST letter I got in the mail yesterday! Ashley (my 3rd grade granddaughter) sent me a wonderful letter!! By the way Alli is growing, she'll be emailing me before we know it!! Thank you Ashley. You made my day!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, March 11, 2004 11:51 AM CST

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Way to go Ally. I love the picture where you're combing your little pony's hair. Keep up the good work. God Bless.

France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Thursday, March 11, 2004 7:54 AM CST

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this is katlynn grandmam she is in the hosp with the flu .she went monday for treatment but thay sent her back home her temp was 1001. her docter put her in hosp yesterday her oxgen lev was down to 80 she need your prayers she is realy sick.
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Wednesday, March 10, 2004 10:21 PM CST

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YEA Alli!!! Why to GROW!!!! Great news and hopeful news for all that on taking the infusions.
I love you Alli!

Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, March 10, 2004 3:57 PM CST

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Hi Alli and Jenn, Hope today's infusion is going well. Thinking of you both.

Hugs and Kisses
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, March 10, 2004 11:31 AM CST

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Hey there!
It has been a while since I have been in touch! Wow you girls look beautiful. Sure was sorry to have missed you at Christmas time but as we traveled by Bismarck your line was busy or no one would answer. Hard to believe our babies are three! Well Isaac will be in just a few weeks. Sure have been thinking and praying for you! Sending lots of love your way and I am so glad your treatments are going well for you Alli!
Love, Rachel
Rachel Cremer <isaac@hotsprgs.net>
Hot Springs, MT - Tuesday, March 9, 2004 9:37 PM CST

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Hi Allison. It's very exciting to hear that you are doing very well! My little girl Ashley is 45 days post transplant and I was told that she is actually 96% donor. That was a excellent news! Ashley is doing very good. I hope you continue doing good also. Good luck!!
Angela caringbridge.org/ny/ashley <Angela_Rosario9@hotmail.com>
Durham, NC USA - Monday, March 8, 2004 11:05 AM CST

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Good Monday Morning! Lovely weather heading your way...I heard in the 40's!! Hope you can get outside and play Alli.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, March 8, 2004 7:22 AM CST

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Lovely photos, I hope everything goes well with the Family Opportunity Act. It seems we all have enough battles on our hands already.

Love
Tina
Tina (Sophie's Mum) <tina@melroseroad.co.uk>
London, UK - Sunday, March 7, 2004 3:47 PM CST

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Good Morning to all! Snow, snow and more snow. I was hoping for a early spring...NOT SO here in Fargo!!
If I can't travel at least I can see the pictures of my Granddaughters!! Jenn, can you send me the opening picture on email so I can put it on my computer screen?
Have a great weekend!!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Saturday, March 6, 2004 9:14 AM CST

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Jennifer-
I just got off the phone with you a short while ago. Jarrett just finished his infusion and I flushed his port. I looked it up. This was his 42nd infusion. The last 19 infusions I have done here in our home myself! Your girls are darling. I'm so glad I took the time to randomly email you today. Keep your faith. If you can find a doctor willing to help you do these at home, have him call me if he has any questions or reservations. I can highly recommend an IV drug company, Theracom, for you. They deliver Jarrett's aldurazyme directly to our home with all the supplies needed to infuse it. Call me or email anytime you need anything!
Shelly Koblitz
Justin, Shelly, Morgan, Paige, & Jarrett Koblitz <jskoblitz@sctelcom.net>
Hazelton, Ks USA - Friday, March 5, 2004 2:05 PM CST

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I just can't stop bringing up the new pictures!!! It is so fun to see both girls. I am snowed in here for the weeeknd. My Cities plans were thrown off due to the heavy snow and closing schools. Aunt Jessica is home today due to the weather as well! Must be nice!!
Hope it's better in Bismarck!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, March 5, 2004 9:08 AM CST

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I emailed the ND officials and have not heard back yet. But they will email me back with a follow-up letter. They are good about that communication. Both will tell me if they voted for or againist the Bill and the reasons why.
Snow here today and wild weather for us as the high winds come. Guess I'm snowed in for the weekend!!
Have a good weekend girls and Jim!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, March 5, 2004 7:00 AM CST

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I love the new pictures of the girls!!!! What beauties!! Aunt Jessica is coming to Fargo on the 19th so why don't you guys come too? She wants to see the babes and is here just for the weekend. Check you calendar and I'll call tonight to talk about it.
Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, March 4, 2004 5:29 PM CST

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Good Morning to you all. I am up early this morning and thought I would check about your 41st. infusion!! Hope the day went well. Snow here in Fargo to cover all the dirty snow but temps are to climb this weekend...into the 30's!! (remember that ND is slow to move into any type of spring!!)
I am always so amazed at the number of people that check into Alli's site. Wow! Over 19,000 checks. Thanks to everyone who takes the time to sent the caring messages to Alli. As those numbers continue to rise, all those positive internet hugs help beyond words!!
Have a great weekend!

XXOO Alli! Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, March 4, 2004 6:32 AM CST

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HI ALI AND JENN
JUST THOUGHT I WOULD CHECK IN TO SEE HOW EVERYTHING IS GOING.KATILYNN IS DOING GREAT KNOCK ON WOOD.GRANDMA IS DOING OK BUT YOU KNOW SHE WILL BE 85 OK DOING OK IS GOOD FOR HER.I WILL UPDATE KATILYNN PAGE PROBLY TODAY SO STOP BY HOPE EVERYONE IS GREAT THERE.HUGS AND KISSES KATHY AND KATILYNN
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk , ky usa - Tuesday, March 2, 2004 1:50 PM CST

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Hi All, Back home again and checking on my girls. Glad for 40 infusions! Think of what they have done!! Rainy here but snow coming in tonight. No school again tomorrow so it will be a short week. YEA!
Hugs and Kisses!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Monday, March 1, 2004 2:51 PM CST

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LOLOLOLOLOLOLOL

No one needs to spell that word!!!! Sami is wrapped in her blankie and very happy!!! Thank you for putting a smile on her face and making her so very happy! Your the greatest!

Love and Hugs,
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Friday, February 27, 2004 10:28 PM CST

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Hey YOU!

Where's my Ali update??? LOLOLOL We are doing a little better at my house. I'm so happy about Ali's improvement! Keep up the good work Allison!

Love and Hugs
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Friday, February 27, 2004 8:17 AM CST

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I am so glad that Allison's range of motion is getting better. Thanks for the new web pages. Christopher is from Johns Hopkins and I can't believe I missed a Duke Hurler child who is already headed out the door!!! Jeff says I am falling down on the job! Thanks for keeping me connected. Love,Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, February 26, 2004 6:02 PM CST

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Checking in on Miss Alli! It's great to hear you continue to see improvements since the start of ERT.
Lisa Post <ltjpost@cox.net>
- Thursday, February 26, 2004 2:06 PM CST

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Another infusion done with Baby Doll. You are a real trooper and you do such a nice job on your infusion days!!
I send you my love and kudos to Ashley who keeps getting 100's on her spelling and MAJOR tests!! Way to Go!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, February 26, 2004 10:50 AM CST

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Hi Babes! Hope the infusion went well today. I'll call tonight to talk!!

Hugs and Kisses!!
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, February 25, 2004 3:44 PM CST

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way to go ali.your are doing great.sorry i havent wrote sooner we have just been real busy with everything and my granny being sick.we just got back last night and katilynn is doing good well i will talk to u all soon hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, February 24, 2004 11:24 PM CST

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Way to Go Alli!!! Must be all that work you do with your hands at your home DayCare!! Great News!
I just got home from being gone for the weekend and couldn't wait to check in to see how things are going.
Have a great start to the week.
I love You Alli and Ashley!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, February 22, 2004 6:04 PM CST

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Just checking in. Great news about Allison hands.

Love
Tina
Tina (Sophie's Mum) <tina@melroseroad.co.uk>
London, UK - Sunday, February 22, 2004 2:41 PM CST

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Hey Sweetie,

Where's the update??? Come On!!!!! LOLOLOLOL Just checking to see how Ali is. Call me tomorrow!

Love and Hugs
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Thursday, February 19, 2004 7:07 PM CST

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Just saw your website. That is a beautiful poem. My granddaughter was recently diagnosed with MPS1. We are scheduled to start enzyme replacement therapy in March. Just wanted to say hi and GOD Bless. Evline's website is www.caringbridge.org/ky/evline
Cheryl <evlinethomas@yahoo.com>
Evarts, KY USA - Wednesday, February 18, 2004 8:41 PM CST

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Hi Ally, it is so nice to see your happy pictures. You are adorable! My name is Gabe (Gillian's dad) and we have recieved many uplifting messages from your grandma' Janelle.
We will pray that your infusion goes well tomorrow as we pray that Gillian's procedure goes well also. You are precious and I can't wait for you and Gillian to meet someday because I think you'll be friends! God bless you!
Gabe, Gretchen and Gillian <gabearana@hotmail.com>
Minneapolis, MN - Tuesday, February 17, 2004 6:03 PM CST

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How's the 3 year old? Can't believe that Alli is 3!!! Such a dear and she is so full of spunk!! Good luck tomorrow with the infusion. I'll be thinking about you both.

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, February 17, 2004 5:25 PM CST

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Hi Alli!! Happy Birthday!! You're looking great. I'm glad to hear about the potty training, we're still working on that with Max. We're almost there. Hope everything continues to go well. Talk to ya soon!!
Paul & Max Forand (www.caringbridge.org/nj/maxforand) <forandkerrigan@comcast.net>
Millville, NJ - Tuesday, February 17, 2004 2:46 PM CST

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Thank you for sharing, have printed it and will put it where all can see and read. Hope all is going well with Ali, sure she is enjoying her "castle". You all remain in my thoughts and prayers.
Love,
Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Tuesday, February 17, 2004 1:02 PM CST

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Very Well Said!!!!! Thank you for sharing. I may have to print it up and put it on my frig! I'll call you later!

Love and Hugs,

Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, Ca - Tuesday, February 17, 2004 12:04 AM CST

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Hi All, Hope your Valentine's weekend went well. The weather is suppose to break into warmer temps so I hope you can get outside and enjoy!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, February 16, 2004 6:29 PM CST

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just stopping by to say hello and that i am praying for you. I found your link at the mps forum, i dont have mps but i kinda stumbled upon that site 4 years ago and havent found my way out yet **smile**
Laterz,
dabrat
Keara <Kamethyst70@hotmail.com>
www.caringbridge.org/tx/dabrat, TX USA - Monday, February 16, 2004 5:21 PM CST

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Happy Valentine's Day to a very SWEET girl! Hope you had a fun day Ali.

Love,
Nikki & Cade Morrissey
Nikki Morrissey <slimpikens1@yahoo.com caringbridge.org/il/cademateo>
Kewanee, Il USA - Saturday, February 14, 2004 9:33 PM CST

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hello ali and jenn
i am glad alli liked her birthady package and they said it might be sometime in march or april before getting any thing closer if then so i am keeping my fingers crossed so i guess it is a wait and see thing like everything with the hurlers.talk to u all soon will be back to check on you soon hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, February 12, 2004 11:54 PM CST

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Hi Alli!
I am glad that your infusion went well again yesterday! It's good to hear that you are going in the potty!! I am SO proud of you!
Have a good Valentine's Day! I sent you and Ash something in the mail, I hope you like it!
Love you,
Jessica
Aunt Jessica <jshu21@msn.com>
Eau Claire, WI - Thursday, February 12, 2004 10:47 AM CST

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Happy Valentine's Day to all my Girls! I thought about Alli all day yesterday with another infusion taking place. After witnessing the infusion I have such a better understanding of what goes on. I have that picture of Alli strutting down the hall on her way!!
Cold and snowy here (again). I have such good neighbors who keep snow blowing my driveway. With my recoverying foot-that is a good thing!!
Take care all and I'll call on Valentine's Day.

Love to All!
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, February 12, 2004 6:46 AM CST

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Hi All, Is life with a 3 year old better than a two year old!!?? ha! So many nice wishes for your birthday Alli. You are a such a special little girl with a lot of internet angels checking in on you. Have a great week and keep on jumping!!

Hugs and Kisses- LOVE, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, February 9, 2004 12:05 AM CST

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Hey there Ali!!! A very HAPPY 3RD BIRTHDAY !!!!
I hope you had lots (no, make that TONS of fun!!!!)
I cannot begin to imagine how cold it is there!! we had a day here that was like 35 below with the wind chill and I didnt want to leave me house!!!!! I spent the day looking at rental houses in the Outer Banks, NC and it is making me miss summer time soooooo much!!!!
Well, I hope you have lots of fun on your bouncy thing!
Austin would love one of them but I just havent gotten around to getting one yet!! I may get him a big trampoline this summer though!! (maybe...) ha ha
I'll be back to check in soon!

p.s. I love your strawberry shortcake outfit! I have a strawberry shortcake air freshner in my car!!!

carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc>
philadelphia, pa usa - Sunday, February 8, 2004 9:02 PM CST

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Happy Birthday Allison

Love
Sophie & Amy
Tina <tina@melroseroad.co.uk>
London, UK - Saturday, February 7, 2004 3:19 PM CST

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Hello Allison. I received your email. Ashley is doing good so far with her transplant. I hope you feel just as good as Ashley feels. Ashley is currently at Duke Hospital in North Carolina. If you want to get in contact with us my name is Angela and I'm Ashley's mom our number is 919-681-5207. If you have any questions or any concerns. We are in this together! Believe in God and keep those prayers going. They work. If I was to tell you how it came about for Ashley diagnose and soon we came down here for her Bone Marrow Transplant you would probably be surprised. God listens to our prayers and our desires. Everything he does has a purpose even though we may not understand why us? And why our children? Just hang on. God bless you Allison&family.
Angela Rosario <Angela_Rosario9@hotmail.com>
Durham, NC usa - Friday, February 6, 2004 8:40 PM CST

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hello ali happy birthday i hope you had a great 3rd birthday and i dont know if you got your birthday package we sent you.i hope it dont get lost well i will check back on you have fun jumping in your castle hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, February 6, 2004 6:27 PM CST

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Happy Belated Birthday Ali!!!! I'm so sorry I forgot! I know you had a great time. Keep jumping baby!

Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Friday, February 6, 2004 5:16 PM CST

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HAPPY 3RD. BIRTHDAY ALLISON!!!!! Hope you had a great day and got lots of presents.
Love,
Nikki & Cade Morrissey
Nikki Morrissey <slimpikens1@yahoo.com caringbridge.org/il/cademateo>
Kewanee, Il USA - Thursday, February 5, 2004 10:50 PM CST

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Happy Birthday Allison, sounds like you had a GREAT day! I know your going to love your jumping castle. Hope things are going well for you Jenn, you all remain in my thoughts and prayers.
Love,
Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Thursday, February 5, 2004 10:48 PM CST

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HAPPY BIRTHAY ALLISON! I cannot believe that you are THREE years old! You are gowing up into such a beautiful, smart, funny little girl! It's so fun to see your personality shine!
Have a great day Alli, I love you!
Aunt Jessica
jess <jshu21@msn.com>
eau claire, WI - Thursday, February 5, 2004 11:40 AM CST

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Jenn-I wanted to send you my greetings and tell you I will pray for Alli. I am an old friend of your mom's. We lived in the same trailer court in Mhd and I took care of you often when you were about the same age as Alli. I will check your website often to hear how things are going. Blessings to you all. Vicki Miller

Vicki L Miller <vickim@tvutel.com>
Waubun, MN USA - Thursday, February 5, 2004 11:18 AM CST

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HAPPY BIRTHDAY ALLI!!! I cant believe you're already three!! You're getting soooo big already. Jen & Jim, just thought i would drop you guys a note on the webpage, and tell you that i admire your strength as a family, and I keep you all in my prayers. PS, please say hi to Ash for me, and ask her how her spelling is going this year. Hope to see you all soon,

--jb
John Bennett <jb3_42@hotmail.com>
Maple Grove, MN - Thursday, February 5, 2004 10:52 AM CST

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HAPPY BIRTHDAY ALLISON! I LOVE YOU AND WILL GIVE YOU 300 KISSES WHEN I SEE YOU!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, February 4, 2004 7:02 PM CST

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Have a wonderful birthday! Hugs and Kisses from Riley and Sydney.

xoxoox.......Jeanne
Jeanne Joiner <jeannejoiner@hotmail.com caringbridge.org/ok/rileybear>
Del City, Oklahoma USA - Wednesday, February 4, 2004 4:53 PM CST

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Hi Jenn and Alli. Hope your days are going a little better.Your brthday is almost here,what a fun day. I talked with my friend, Jenn and one they live in MN and two Dylan did have some delays. She said not to give up. Keep calling and bugging people, the biggest one she said would be the Govenor and the Senator. The more you bug them the sicker they get of you and then give in. Never take a no you will at somepoint get a yes. I know the road seems long, but I know you can do it.Take care and talk to you soon.
Happy Birthday Alli,

Rhonda Thiel <thiels6@msn.com>
Wahpeton, n USA - Wednesday, February 4, 2004 1:38 PM CST

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One more Day Sweetheart and you will be 3!! Have a good day today at infusion and say hi to your "girlfriends"!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, February 4, 2004 7:36 AM CST

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I've been thinking about you, wondering how you're Fairview visit was going, so I logged on this morning to check things out. I'm glad that you didn't have to travel in this blasted weather, but sad about the MA glitch (seems bigger than a glitch). Roxane
Roxane Romanick <romanick@bis.midco.net>
Bismarck, ND USA - Tuesday, February 3, 2004 10:16 AM CST

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Good Morning Allison! One day closer to your birthday! I'm starting to send my hugs and kisses now so you know that I am thinking of you!!

XXOOXXOO, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, February 3, 2004 8:22 AM CST

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hello jenn and ali
just wanted to let you know that i took your birthday package to the postoffice and the well mail it out tomorrow and i hope that you get it for your birthday.i sent you a few thing to let you know that we are thinking of you on your birthday well hope to talk to you soon hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@Yahoo.com>
tomahawk, ky usa - Monday, February 2, 2004 6:11 PM CST

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Hi Soon to Be a Three Year Old! I am counting the days so I can call and ask how old you are!!! Thinking of you all.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
fargo, ND USA - Monday, February 2, 2004 5:54 PM CST

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hey guys,
I am so sorry about your stress lately! I am also sorry for not signing recently, I have been just horrible about not signing kids websites!!! Well, I am back and checking in!!! I HATE insurance companies, they denied Austin one time when I was walking out the door for Duke, Yep, the car was packed and everything, I was actually late leaving or else I would have already been there when they called me!!
We were furious then, we called all the news shows, the local newspapers, the woman who worked for the insurance co. told me that "as a parent, I shouldnt take my sick child away from his home" oooooh, I was never so mad!
We did end up getting his transplant approved, after much fighting! Keep the faith and your head up, everything will work out, and if they try to hold you back, get mean!!
Call state officials, our local senator got the transplant approved for Austin within minutes so they know how to move these people!!! Anyway, stay warm, Geez, here I am complaing when he get close to zero, let alone 40 below!! THAT IS CRAZY!!! well, talk to ya soon!!

carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc>
philadelphia, pa usa - Sunday, February 1, 2004 8:28 AM CST

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hi allison this is katilynn grandma kathy said your birthday is the 3 i wish you a very happy birthday. mine is the 2 are birthday are close together i was born on groundhodday i will have to stay in that day so i wont see my shadow lol.so we will have six weeks of good weather lol i hope your birthday will b a good one. your friend frances
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Saturday, January 31, 2004 10:00 PM CST

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hi jenn and allison
tell ali to look out for a birthday package for katilynn.i will send it out monday i hope it gets there in time.let me know if thats the right address on ali front page so i can make sure it gets to her.hugs and kisses
kathy and katilynn preston <www.katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Saturday, January 31, 2004 6:17 PM CST

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hi just want to tell u that we added ali web page to katilynns new web page and please go visit it is http://katilynn.truecountry.com/index.html
kathy and katilynn preston <www.katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Thursday, January 29, 2004 2:27 PM CST

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I met your mom, Janelle, at the NEA midwinter conference on January 16-18. We were roommates. I wish you well in your journey with your daughter. My thoughts and prayers will be with you.
becky melhus <becky.melhus@sendit.nodak.edu>
Portland, nd usa - Thursday, January 29, 2004 9:01 AM CST

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Now is my time to BRAG! I spent the most wonderful five days in Bismarck playing with Alli and Ashley! I got to witness Alli's infusion today. That little girl struts through the hospital halls like she owns them...and all the nurses and doctors too!! From the first "hello girlfriend" from one of many kind nurses who help Alli out, I had an incredible experience. Alli's care is given from the hearts of many and I thank them all so much. Jenn is the best Mom who is guiding the entire process to be as enjoyable as possible for her daughter. My heart swells with pride as I watch my baby care for her babies...all mothers want their children to just be good adults and I surely can see the results in Jenn. Way to go Jennifer!
Allison and Ashley are a peach with two wonderful parents who love them and show them they love them so much each day.
Thanks to all of you who check in on Alli's progress. And she is progressing!!! We are all here to help each other out. Way to go "girl friends" (and to the Dads too!!)

Janelle
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Thursday, January 29, 2004 3:26 AM CST

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It was very nice meeting you today, I hope when you make the trip to the cities all goes well. Allison sure is a cutey. We'll be checking in to see how things go.
Marna Frick <www.caringbridge.org/nd/reesefrick marnafrick@yahoo.com>
Watford City, ND - Wednesday, January 28, 2004 9:35 PM CST

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Have a safe trip! You all will be in my prayers.
Love,
Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Wednesday, January 28, 2004 3:34 PM CST

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Have a safe trip! I'll pray for a safe MRI. I know it is nerve-wracking!
Lisa Post <ltjpost@cox.net>
South Windsor, CT - Monday, January 26, 2004 6:32 PM CST

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hi jenn and ali how r u all i just wanted to stop by and check on you all and hope everything goes good at the doctor.ali i hope u keep up the good work on the big girl panties hope to talk to u all soon kathy and katilynn when u get time check out katilynns quilt on her web page
kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Monday, January 26, 2004 12:53 AM CST

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I hope your trip goes well, I know how important all those tests are for our special MPS children. Good Luck!! I hated when Niki had the MRI's done also. Good job Allie on wearing big girl panties.. Your picture is so cute..
Denna <Draee67@aol.com>
St. Anne, IL - Sunday, January 25, 2004 10:22 AM CST

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Hi! Just want to wish you well on your trip. We'll be thinking of you guys and waiting to hear all the good news. Cassie talks about Allison quite a bit -- I wish we lived closer so they could play together more often. Love and hugs.
Becky O'Meara and family <omeara@monetbroadband.net>
Moorhead, Mn USA - Saturday, January 24, 2004 10:06 PM CST

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Hi Jenn & Allison,
Haven't signed in in awhile, check all the time, glad things continue to go well for Allison..hope potty training is going good. Just want you to know that your all in my prayers and hope all goes well for Allison next week. Have a safe trip.
Love,
Chris


Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Saturday, January 24, 2004 12:59 AM CST

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Hey You!

I have not talked much to you this week. I'm sorry I have been so busy. Tell Jenelle I said HI! I will be praying for you this week! Keep me updated. Ali will do great!

Love and Hugs
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Saturday, January 24, 2004 10:32 AM CST

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Hello Everyone!!! This is Aaron's Mom popping in to wish you the best of luck next week. Aaron has had many MRI's compliments of Fairview and they have always used conscience sedation that way it is less risky. They still have to be aware of how far back they can bend their neck but at least you won't have to worry about being intubated. Lots of Hugs and Kisses XOXOXO
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
- Saturday, January 24, 2004 9:14 AM CST

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Hey Allison and Jennifer,
Sorry we haven't signed-in in a while. So sorry to hear about Allison's Medicade. Max gets automatic speech, occupation, and physical therapy because of where we live -- we are grateful for that. The whole health insurance thing makes us sick though. If we moved out of the area (but still in-state,) he wouldn't get these services. How is that fair?? You should try to get in touch with your Congressman. Sometimes we have to make noice for people to hear us!!

Hope you guys are doing well. Allison is adorable in the cover picture. Max is slowly learning to go on the potty too. We have Big Boy underwear (not Pull-Ups) for him, but he only wears them once in a while. If you have any suggestions on the potty training thing, don't hesitate to let us know!!
Paul and Max Forand <(Forandkerrigan@comcast.net) www.caringbridge.org/nj/maxforand>
- Thursday, January 22, 2004 10:41 PM CST

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Alli, I am coming to stay with you and Ashley tomorrow! Can't wait to play with both of you!!

Hugs and Kisses, Love Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, January 22, 2004 1:47 PM CST

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hi allison hope you had a good time im so happy to have your mom and nana for a good friend. it help so much to know someone know what we are going throught. somedays i jest one to cry but i know i have to b strong. me and katilynn had a good time today i try and take one day at a time .i have a lot of hurler kids on my favorites i go and check on them every day. i pray that thay will fine a cure soon. god bless you all
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Tuesday, January 20, 2004 10:41 PM CST

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hello alli and jenn and family i am glad you all made it back from your trip and safe and sound we hope you all had a great time.we will be making out trip to cincinnati thursday and we hope treatment goes better this time.jenn i cant thank you enough for trying to help put katilynns pics on.i had no luck either but thats ok i will just keep changing the one on the front.well guys i just thought i would just check in and say hi.i will check back later.
kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky 41262 - Tuesday, January 20, 2004 8:22 PM CST

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Hi Baby! It is always so much fun to talk to you on the phone. I am coming to Bismarck on Friday to see you!
Can't wait to see you and Ashley too!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, January 20, 2004 4:16 PM CST

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Hi Allison, glad to hear you are doing good. I love your new big bed. You are getting so grown up. I just had to check up on how you were doing. I'll keep you in my prayers. Angel Sprite from Smile Quilts http://smilequilts.com

Smile Quilts Angel Sprite <smilequilts@smilequilts.com>
Eckert, Colorado USA - Saturday, January 17, 2004 4:57 PM CST

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Way to go Allison, what a big girl. I am thrilled to hear what a good IEP you had with such decent people. I am also glad to hear what a careful eye you are keeping on Allison's cognitive dev. She is such a wonderful little girl, we want her to be all she can be! Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Saturday, January 17, 2004 7:26 AM CST

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Way to go Alli!! Keep up the good work. See you soon!!!
Chad, Jane, McKenzie, Haydn and Lucas Becker <Mckaydas@aol.com>
Andover, MN - Friday, January 16, 2004 10:54 AM CST

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Hugs and Kisses to Alli and Ashley. Thinking of you all.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Friday, January 16, 2004 3:16 AM CST

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Just popping in to see how Allison is doing. She is such a big girl in her new undies!!!! Glad to hear that all is going well for her and her infusions!!! XOXO
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
Belleville, IL USA - Thursday, January 15, 2004 9:19 AM CST

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Hi Babies, I am just checking to see how things went today. Will check back later. Cold here today and the wind is bone chilling!!
Thinking of you!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, January 14, 2004 6:53 PM CST

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hello alli and jennifer well we are finally home today and katilynn is feeling like her old self and we are glad to see ali got a big girl bed and is wear pretty big girl panties well i am glad she is doing good i will talk to u again soon.ali u look so cute in ur big girl bed and u cute big girl panties
kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Wednesday, January 14, 2004 1:42 PM CST

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hi allison you are a big girl now im so glad you are doing so good .think your mom for being kathy friend she has help her so much she need someone to talk to and can understand what she going throught. jest to see you allison give me so much hope for katilynn. god bless you all.love katilynn grandma
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Wednesday, January 14, 2004 10:28 AM CST

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Jenn, jim and girls, I am so glad to see that everything is going well. allison is darling and that smile of hers will take her anywhere she wants to go. I will kepp you in my prayers.
Rhonda Thiel
Rhonda Thiel <thiels6@msn.com>
Wahpeton, ND - Tuesday, January 13, 2004 11:43 AM CST

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Alli My Love, You are TOO CUTE for words! My, such a BIG girl. Where's my baby???? Gone, just like her sister!!
Can't wait to see you.

Hugs and Kisses, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, January 12, 2004 6:06 PM CST

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God She is SOOO Cute! Not Happy about the new bed or panties! LOL.

Look's like a go.... home healthcare on Wednesday!! Yea!!! Did you check the date? 1/14/2004!! The kids start HHC the day before the 1/15/03 vote from the FDA! Almost a year to the day, my kids start on HHC! WOW!

Keep praying for no problems. If all goes well soon Alli will be doing treatments at HOME!!!! YEA!!!

Love and Hugs,
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Monday, January 12, 2004 5:37 PM CST

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Way to go Alli for keeping your nice Strawberry Shortcake panties dry all day. That's a great accomplishment. Your new Big Girl bed looks awesome. God Bless.

France Albert <france.albert@gdcanada.com>
Ottawa, Ontario Canada - Monday, January 12, 2004 12:47 AM CST

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hi jennifer and ali good morning i am so glad that u callme yesterday jennifer it is good to have someone to talk to that knows what we are going through and if there is any thing that i can help you with feel free to call me any time or if you just want to talk at any time day or night its so good to have you as a friend.thank you so much for the call.
kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Saturday, January 10, 2004 11:19 AM CST

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Good Morning Girls! I have been reading all the updates on the sites I visit and for the most part, all is good with everyone. I get such hope and warm feelings for all I read about. Alli, you are never off my mind. I've got lots of new play dough for you to play with here at my house!! Have your Mom post some new pictures of you as I show you off all the time to my friends.
Have a great weekend... and Ashley, I'll call you this weekend.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Saturday, January 10, 2004 8:08 AM CST

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hi jennifer and alli sounds like alli is doing great but i am also sorry to here about medicaid.katilynn has her ssi and if alli doesnt have that yet that is something that you might want to look in to katilynn got hers in a matter of months.hurlers familys go through so much and to have to worry about money for the medication we shouldnt have to you know there has to be something out there to helpl.i am thankful that katilynn has her medical card.but my husband has been hurt at work since the week before christmas and we are also having a hard time with money with the travel and hotel expences but there should be something out there to help familys through these times i will keep you in my prayers.sorry i havent checked in for a while.i will be back soon.if you ever want to talk or need anything just remember we are here here is my number 606-298-0096
kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Friday, January 9, 2004 11:02 AM CST

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Jenn, was good to hear from you. I so wish that your meeting with SS would have turned out diffrently. The guidelines really do need to be revised. These kids and their families fight such a fight just getting through treatments and then have to struggle for support. I wish you the best, and if there are letters that we can write to our Senators and Congressman, please free to contact us.
Prayers to your family....
Terri Lien (Jaxon's Wiederholt's grama) <flash@ndsupernet.com>
Dickinson, ND - Thursday, January 8, 2004 11:56 PM CST

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Oh Jenn, there has to be a way...Lois is sending me a website for prescription coverage for ND. Her sister needs assistance and this is a new way for ND people to get the drugs they need. I will send it to you ASAP.
I am so happy Alli tested the way she did so let's find a different route to help in her. One day at a time...changes take a long time but that doesn't mean you can't stand the process!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, January 8, 2004 8:50 PM CST

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Hi All, Sounds like there are a lot of hurdles to jump but I can't think of anyone better to do it! Go Jenn!!
Try to keep warm and talk to you all soon.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, January 7, 2004 9:20 PM CST

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Good Luck on Thurs. Jenn...keeping you all in my prayers.
Love,
Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Tuesday, January 6, 2004 8:05 PM CST

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Go Jen Go!!!!! I will be praying for you on Thursday! I will call you later!

Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, - Tuesday, January 6, 2004 9:48 AM CST

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Hi All, How was your weekend? I bet there were ton more presents to be opened by everyone!! A cold day here today (-37 below!!) but I am keeping warm...maybe! Warm thoughts your way!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
- Monday, January 5, 2004 6:48 PM CST

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Hello Allison and family, I've been visiting some of the MPS and Hurler's families and thought I would stop in and say hi to you and wish you great success in 2004. I would like to invite you to visit Smile Quilts http://smilequilts.com and see if you would like to have a virtual online Smile Quilt made especially for Allison. Our Quilting Angels would love to create one with her in mind.

Smile Quilts Angel Sprite <sprite@tds.net>
Eckert, Colorado USA - Saturday, January 3, 2004 2:46 PM CST

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Hi All, Just checking in to see if the storm has hit in Bismarck?? I know that snow warnings are to the North (where you are all headed!!) Take care on the road!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Friday, January 2, 2004 2:39 PM CST

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Family Of Allison May,
May God Grant you a Great 2004and touch Sweet allison with his healing hands. She is a true fighter and so brave. Reading her story I was touched by her brave ness and her big smile.
we will keep Allison and your family in our prayers
www.caringbridge.org/tn/kayla
this is my Little Mikayla's Angel page if you would like to visit
Warmly
April Harris <sh6Hrr@aol.com>
- Thursday, January 1, 2004 3:00 PM CST

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Sounds like you guys had a great Christmas. I heard that the Care Bear went over quite well. I was with Jess last night and she gave me the address for this site-now I can stay updated too! Have a great New Year's Day!
Meredith (Anderson) Wold <meredithwold@hotmail.com>
Minneapolis, MN USA - Thursday, January 1, 2004 1:21 PM CST

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Happy New Year to all! It is a cold day here in Fargo but I sent warm thoughts to Bismarck! Have a great weekend with additional Christmas parties as you travel to Grandma's house in Grand Forks. I hope you can stop here but I know you have an action packed weekend planned.

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Thursday, January 1, 2004 10:13 AM CST

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Denna, this message is for you. (Since you do not have a website yet) Hang in there Please! There is a whole new world opening up to you and lean on us. We all started the same way you are...scared...terrified...sick with worry...BUT there is this network here for you and your family. Take heart. You are not alone. We may not have all the answers but there is a lot of support and advice for you. All the information you need and all your questions answered - at your finger tips through this wonderful, provided for, website. Please let us know when you have your website up and we will come and visit. Call, Write, Cry....we are here for you.

Support for You, Janelle (Alli's Nana)

p.s. Hi Girls. I am home. Back in the cold and snow! Miss you and will call tonight. Hugs and Kisses!!
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Wednesday, December 31, 2003 3:50 PM CST

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Good (early) Morning! I am heading back to the cold and snow this morning. It is about 4:00am and we are going to the airport about 4:30. I should be back around 12:30. Happy New Year to you all!!

Love, Mom
janelle schumacher <shoe111550@yahoo.com>
- Wednesday, December 31, 2003 3:51 AM CST

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Hi Allison! Sorry it's been a while since I've signed your guestbook but I do check on you to see how your ERT treatments are going and I'm happy to see they are going fine! Good luck with the Strawberry Shortcake panties and the potty deal! God Bless!
Lisa Post <ltjpost@cox.net>
- Monday, December 29, 2003 1:02 PM CST

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I just read your story and was emotional involved. My 15month old daughter was just diagonised with MPS1 H on December 5th. She is being treated at Childrens Memorial Hospital in Chicago. I was so shocked and had no clue on what MPS was until now. I am living the nightmare. Niki has gotten her second infusion of Aldurazyme on Friday and so far so good. Our first infusion was scary because Niki had a reaction that caused her to break out in a red flushing all over her body. She has had so many test and blood taken that I feel for her everytime we go to the hospital. We have decided to continue with the BMT and I pray that this is the right decision for us. I was told last week that beside the Kyphosis in her back Niki has severe hip disorder and additonal surgery will be needed. I have talked to Miss Molly's mom and she included NIki on her website. We are in the process on creating a web page for niki. Jan 2nd Niki is having her tonsil's taken out and tube's put in. Please Pray for us. I will continue on checking on Allison's progess it gives us hope!!!
Denna Panozzo <Draee67@aol.com>
St. Anne, IL - Sunday, December 28, 2003 11:24 AM CST

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Hello, Allison. I'm your...wow...fourth cousin? Something like that. My mom and your grandma Karen are first cousins, if that's less complicated. :) I live in Grand Forks just like your grandma Karen, and I used to hang out with your grandma Bunny a lot when I was younger.
I am jealous that you got Care Bear underwear. I got Care Bear socks from my mom for Christmas. I used to have tons of Care Bear stuff when I was little, and now that I'm old, it's retro and cool again.
Keep on keepin' on, kiddo.

Amanda Rae Becker <amanda_the_great@und-alum.org>
Grand Forks, ND Grand Forks - Saturday, December 27, 2003 10:06 PM CST

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hi jenn maybe when u get the chance i wanted to know if you can tell me how to put pics in the album if you can i would be greatful
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, December 27, 2003 8:42 PM CST

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Hi Allison!! Hope you had the very best Christmas ever!!! Austin had lots of fun, he got all 4 wiggle dolls and even a dvd player for his room!! (mommy is still waiting for one of those and santa went and brought it to him instead!!) I also hear ya about the underwear thing! Austin got a million presents but his favorite were his new big boy boxer briefs and his "tagless" undershirts!!! He said they are him man clothes!! Ha ha ha! Well, better go for now, the game is coming on soon!
GO EAGLES!!!!
Carolyn and Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc>
philadelphia, pa usa - Saturday, December 27, 2003 6:33 PM CST

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hi it sounds like christmas went great and i hope that the new years will bring us better news about hurlers will i will check back in later i hope everyone will have a great news years
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, December 26, 2003 9:23 PM CST

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I hope you had a great christmas we think of you always. Thank you for continuing to support us. We are so grateful for good friends. Happy New Year.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Friday, December 26, 2003 9:02 PM CST

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We are now into a Happy New Year! Hello from Mississippi. The weather here is delightful and I have shopped for tons of gifts for the girls. I have their outfits for next Christmas!!! Hi from My Mom and Happy New Year!!!
janelle schumacher <shoe111550@yahoo.com>
- Friday, December 26, 2003 12:55 AM CST

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Merry Christmas!
Cathy Peters <www.caringbridge.org/canada/isobel jacon@shaw.ca>
- Wednesday, December 24, 2003 4:33 PM CST

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Merry Christmas!! We are thinking of you this holiday season and hoping you escape the flu too! Most of all, we hope you have a memorable Christmas and hope that Allison stays well and healthy.
Paul and Max Forand and family <Forandkerrigan@comcast.net (www.caringbridge.org/nj/maxforand)>
- Tuesday, December 23, 2003 10:06 PM CST

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Have a Very Merry Christmas!!!!!!!! May Santa bring you all the good stuff! May the New Year bring you Health and Happiness!

Love and Hugs,
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Tuesday, December 23, 2003 8:57 PM CST

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Just wanted to wish you all a Merry Christmas!! You all remain in my thoughts and prayers. Love, Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Tuesday, December 23, 2003 7:52 PM CST

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I hope Santa brings you all everything you wish for.
Merry Christmas and a Happy New Year

Love
Tina,Padraic,Amy + Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Tuesday, December 23, 2003 3:31 PM CST

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Merry Christmas to my Girls and Jim! Jim had a birthday yesterday (just ask Alli and she spills the beans on how old everyone is!!). Happy Birthday Jim!! Grampa Will got here last night and he with Aunt Jessica will be coming for Christmas. I miss you guys already and I have not left yet! I will write to you from Mississippi.

Hugs and Kisses!
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Tuesday, December 23, 2003 7:36 AM CST

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Hi Alli,

Have a good Christmas and New Year.

(You remind me of a girl I dance with at the club - she has eyes just like yours - she is really neat - she is a fox.)
Max's G-Pa J.
Burbank, Il USA - Tuesday, December 23, 2003 3:03 AM CST

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Happy Holidays! We hope the flu bug stays far far away from your pretty one!
The Ashley's (Max's Friends)
IL - Monday, December 22, 2003 12:51 AM CST

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Hi Allison!! You are just too cute!!! I love all your pretty pictures!! I just wanted to stop by and wish you a merry christmas!!! Are you getting excited yet ??? I cant believe it is in 3 days!!! Austin is patiently waiting, tell your mom thanks for always stopping by and signing Austin's website!!! Looking forward to always talking!!!
carolyn and austin caucci <tweet84675@aol.com or www,caringbridge.org/page/austinc>
philadelphia, pa usa - Monday, December 22, 2003 7:22 AM CST

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Hi Babies! I am so glad you all got to play outside today. A nice winter day feels great when it's in the 40's!! Aunt Jessica came to Fargo today and she will be there to see you all in a few days. Grampa Will is coming to see you too!
Merry Christmas my little ones.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Saturday, December 20, 2003 10:00 PM CST

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hi ali and family i just wanted to check on you since i have been gone glad that your infushion went well.well ali and ashley not to much longer for santa to come hope you all have been good little girls and i think by the lookes of you to he will make a big stop at your house talk to you guys later.
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, December 20, 2003 3:22 PM CST

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Hi Miss Alison,
Glad the infusions are going so great. As for exercise, we use the exercise trampoline. It is small enough for inside and can be put away easily. My boys love to jump on it. Great exercise for leg muscles. Hope your holidays are great.
Take care and God bless
Jeanne and "Taylor" Blair <mommyjb@cox.net or caringbridge.org/va/taylor_blair>
Va Beach, Va USA - Saturday, December 20, 2003 3:58 AM CST

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Hi Jennifer and family. Through my mother-in-law knowing Janelle, I got this website address and have been reading about Alli and the other children with this rare disease. Your support network is awesome, and I hope that the more people know about this, the more support you will receive. Take good care, Jennifer (Gonser) Songstad
Jennifer Songstad
Fargo, ND USA - Friday, December 19, 2003 3:41 PM CST

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Allison and Ashley, Aunt Jessica is coming home to Fago today! Grampa Will and Aunt Jessica will be in Bismarck for Christmas!! They are so excited to see you all. Have a great weekend.

Love, Nana
Janelle Schumacher <shoe111550@YAHOO.COM>
- Friday, December 19, 2003 11:46 AM CST

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Hi Jenn & Allison, glad all is going well, I think everyone is trying to avoid that nasty flu..I broke down and had a flu shot this year, didn't want to take any chances with Cade. Thank you for posting Cade's web page, I know Nikki will be pleased to find you and Tami both in touch. Keeping you all in my thoughts and prayers...Love,Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Thursday, December 18, 2003 1:34 PM CST

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UPDATE! UPDATE! UPDATE! LOL. Nothing like a friend that picks on you! LOL I will be out shopping today so call me on my cell phone. Quick Noah update. He is in the hospital again. Jenelle called and left a message on my cell and she was gone before I could call her back. I will update on my page when I hear anything. Get the prayers going!

Love and Hugs,
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Thursday, December 18, 2003 10:53 AM CST

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Hi Alli, I hope all went well today. I was thinking of you all day!!

Hugs and Kisses, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Wednesday, December 17, 2003 3:06 PM CST

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Hi all!!
I got your X-mas card the other day! What a beautiful picture. I just wanted to drop a quick line ...... even though I don't write very often ..... you are always on my mind. I hope you have a wonderful holiday. Hopefully we will get to see more of each other soon. I move to Fargo in June for at least 2 years. It has been so long since we have seen each other. Talk more soon. Love, Kara
Kara Johnson <kjohnson@medicine.nodak.edu>
Grand Forks, ND 58201 - Tuesday, December 16, 2003 0:53 AM CST

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hi ali and jennifer thank you for wishing me a happy birthday that means alot to me i hope you all have a good week and i will update katilynns page as soon as we get back from cincinnati
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, December 15, 2003 9:14 PM CST

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hi ali love the pictures with santa i wish katilynn would do that im glad to see u had another great infusion katilynn will be going back next week for her 4th and will also be have a video swallow which will be fun(not)and then on to the heart doctor which katilynn likes him and thats a first.i am glad that you put katilynns name on your web page thank you from all of us.well i will be checking back hope you have a safe and happy week
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, December 14, 2003 11:03 PM CST

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The pictures are wonderderful! Max won't even get that close to Santa. He can bring him presents as long as he doesn't see him. I am happy that things are going well. MPS or not children amaze me everyday they just grow up way too fast. I hope you have the very best holiday and an even better next year. My thoughts are with you. Merry Christmas!
Kim Forand <kforand@bnh.org>
Millville, NJ - Sunday, December 14, 2003 4:48 PM CST

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Christmas came early here in Fargo! Jenn, Ashley and Allison all came to open presents and celebrate Christmas with me. I am heading to Mississippi to visit my Mother for Christmas so I am so glad that the girls all could come here for the weekend. Needless to say, all presents were opened and fun was had by all.
Merry Christmas to Everyone!!


Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Sunday, December 14, 2003 1:52 PM CST

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May love surround you
May faith sustain you
May hope encourage you
Day by day

Amy, Mom to Angel Delaney, 4/9/96 - 1/7/2002, dx. AML Leukemia 2/6/01, fought courageously for 11 months, and Kevin, 11, with ADD, loves tennis and roller coasters.
Delaney's website: www.caringbridge.com/ca/delaney
Amy, Mom of Angel Delaney and Kevin, age 11 <Wright_Amy@hotmail.com>
San Diego, CA - Thursday, December 11, 2003 11:19 AM CST

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Yea Alli, another infusion done and we move into another week! I am waiting for you and your family to come to Fargo on Friday. Christmas presents will be opened! Dress warm because the temps here today with the wind chill is a cool -29 below!! See you all soon.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Thursday, December 11, 2003 7:20 AM CST

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Hi Alli - sounds like you are doing well - keep up the good work and have a nice Christmas.
Max's G-Pa J.
Burbank, Il USA - Tuesday, December 9, 2003 5:12 PM CST

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I love the pictures! What a beautiful flowergirl! I am sorry that you will be losing services. Correct me if I'm wrong but if the services continue won't that help keep Allison from needing further assistance later on down the road?
I can just picture Allison holding your face in her hands trying to comfort you when you feel sad or mad! How cute!!!
Happy Holidays and we wish you continued success with the ERT! Love, Jake and Cathy
Cathy Peters <www.caringbridge.org/canada/isobel jacon@shaw.ca>
- Tuesday, December 9, 2003 12:19 AM CST

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Good Morning Jenn and Jim, What a wonderful way to stay the day by looking at those daughters of yours!! I hope you can all come this weekend to Fargo. Hi to Alli and Ashley.

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Tuesday, December 9, 2003 7:29 AM CST

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Hi Jenn, the pictures of the girls are great, Alli looks so cute in her hat, even her tears over "Santa". Ashley is a doll, your mom is right about her dating days, our children grow up far too fast! Hope all is going well with all of you and Alli is doing GREAT! Keeping you all in thoughts and prayers on this end. Love, Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Monday, December 8, 2003 8:52 PM CST

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Jenn, those pictures are wonderful!! I hope Santa didn't feel bad when Alli cried!! Both Alli and Ashley look too cute for words!!! You will have to tell Alli that he came to my house so he wouldn't scare her anymore...and left some presents here.
You had better enjoy these years that Ashley is too young to date because it looks like you will be in for the ride of your lives when that happens!! (let's see, about 25 years old, right??)
Everyone-Have a good week!

Love, Mom
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Monday, December 8, 2003 8:41 AM CST

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Jenn,
The Santa pics are ADORABLE!! Thanks again for having mom and i for Thanksgiving, talk to you soon,

Jessica Schumacher <jshu21@msn.com>
- Monday, December 8, 2003 7:51 AM CST

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Hey Babies! I wrapped Christmas presents for over 2 hours today! Whew! I wonder who they are all for????? Can't wait to see you all. Come anytime to open presents!!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Saturday, December 6, 2003 7:29 PM CST

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hi ali and jennifer.you dont know how that makes me feel that you visit katilynns site alot and that you write us back to.it is just hard to deal with all of this and it makes me feel good to know that there still people out there that still care for others and that helps out alot.glad ali treatment went well and she is just like katilynn about barney when her videos goes off she will start hollaring mom mom and u know what that means.but put in a barney movie or as katilynn cause him booboo and a reese cup and she is good to go.i hope you all have a great christmas and i am glad you updated her page.well i hope everyone is well there talk to u soon.
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, December 6, 2003 5:42 PM CST

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Hi

Just wanted to send our love and say thanks for checking in on Sophie. I am so glad Allison is doing well.

Love
Tina (Sophie's Mum)
Tina <tina@melroseroad.co.uk>
London, UK - Saturday, December 6, 2003 3:43 PM CST

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Hi Jenn, thanks to Nana for letting us know why no update, I have been checking since Wed. and was beginning to get worried...glad all is well and it's only computer problems. Glad all went well with ERT this week! Cade had his stopped shortly after starting due to his blood pressure going alittle high, his pressure is always up when he's in a doctors office. They did start it back up and completed it. He will have a kidney doctor checking on him next week, pray all is ok. Our little guy will celebrate his 3rd. birthday doing treatment 12/11. You all remain in my thoughts and prayers. Love, Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il. USA - Friday, December 5, 2003 10:04 PM CST

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Jenn's computer has been down since Tues. and since there is no new update...I thought you all should know!! I, too, am checking in to read about Weds. I called and talked to all 3 girls. Everything went fine and Alli is such a doll on the phone. She now says good-by to me by saying..."Good-by to my Nana." Melts my heart!!

Janelle
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Friday, December 5, 2003 9:01 PM CST

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Update, update, update! LOL. Just had to pick on you. Thanks for making me feel better today!!!!

Love and Hugs
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Friday, December 5, 2003 4:07 PM CST

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Hi Jenn & Allison, Just wanted to let you know your both in my thoughts, hope ERT continues to go well for Allison. Thank you Jenn for the web page for Katilynn, have added her to my list of children to follow. I don't have alot of children to follow on ERT, have followed alot on BMT. Cade has been on medicine for his sinus and cough, is doing much better. His treatments are going well, he has really been good about all of it. You all remain in my thoughts and prayers. Love, Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Wednesday, December 3, 2003 9:37 PM CST

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Good Morning Alli and Jenn! I am sure you are both off for the infusion already this morning but I want you to know that I was thinking of you. Hope your time spent together this morning was fun!!

Love You both.
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Wednesday, December 3, 2003 8:16 AM CST

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hi ali and jennifer i cant thank you enough for helping make katilynns web page.ali is the cutest little girl i have ever seen i bet she is the sweetest thing ever.here is katilynn web page if u would like to see it www.caringbridge.org./ky/katilynnsmom again thank you for ur help.we are getting ready to go back to cincinnati for another infusion friday so we hope all goes well.talk to u soon.
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, December 1, 2003 2:48 PM CST

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Good Morning to All! It is a breezy day today as we all start our week. Have a great week and as the temps get warmer, I hope you all get outside to play.
Thinking of you Alli and Ashley!

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Monday, December 1, 2003 7:29 AM CST

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Good Luck today Alli! I will see you tomorrow for lots of hugs and kisses!! Aunt Jessica and I will drive there in the morning for Ashley and Alli. I know your Mom and Dad are fixing a turkey for us!!
See you all on Thanksgiving.

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Wednesday, November 26, 2003 7:34 AM CST

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hi just wanted to say that my daughter is 2 and we were told about 2 1/2 months ago that she has hurlers syndrome and has started taking the replacement treatment she has had 2 so far and her stats stay low to but hers goes down like certain ways she sits or lays it is the funnys thing how it does.u have a beautiful daughter and hope all goes well and hoping to make my daughter a web site soon.
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, November 25, 2003 10:16 PM CST

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What a wonderful web site. We are awed by your strength and graciousness during what must have been the most difficult of times. We are honored that you chose to share all of this with us. We think of you often and would love to do anything to help. Just let us know. Happy Thanksgiving!! The Marchants
The Marchants
Bismarck, nd usa - Saturday, November 22, 2003 9:56 PM CST

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Hi Girls! I was out Christmas shoping today!! It is starting to snow here a little bit and really cold! Have a great weekend and talk to you all soon

Love, Nana
Janelle Schumacher <shoe111550@yahoo.com>
Fargo, nd USA - Saturday, November 22, 2003 4:38 PM CST

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We think of you often. I hope the next infusion goes better.
Deb www.caringbridge.com/mn/ajtoivola
gilbert, mn - Friday, November 21, 2003 10:02 PM CST

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I'm sorry Ali had a hard time today! I will call you tomorrow and we can talk!!!

Love and Hugs,
Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Wednesday, November 19, 2003 10:17 PM CST

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Ashley sang like a bird and looked five times cuter!! Well done Babe! Alli was in a pink dress and was such a lady while we toured the Mall! Hi to my girls!!

Love, Nana
Thanks for the birthday presents...although Alli should not know how old I am!! LOL
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND USA - Sunday, November 16, 2003 7:32 PM CST

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Ashley, Ashley, Ashley, Get rid of those hives. I will be there on Sunday to hear you...see you all then!

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND USA - Thursday, November 13, 2003 9:46 PM CST

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Hi again Alli!! Glad to hear your head is feeling better and you have your balance back. And I heard the same thing about the antibodies. The children seem to develop antibodies but the antibodies do not seem to cause any problems. Max just had blood drawn to have his tested. Keep it up Alli!! We're all thinking of you.
Paul & Max Forand (www.caringbridge.org/nj/maxforand) <forandkerrigan@comcast.net>
Millville, NJ - Wednesday, November 12, 2003 10:06 PM CST

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Hi Baby Doll, Just checking in to see how it went today. I thought of you all day!!
See you soon when I come to Bismarck to hear Ashley sing.

Hugs and Kisses, Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n USA - Wednesday, November 12, 2003 7:05 PM CST

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Hello you dont know mw but I came across your link from a friends page on the Hugs and Hope Page. She is so CUTE!!! I read her site what a trooperand glad she is doing better from her fall. I also had a little girl with a rare gentic diease and a brain tumor with lost of other things that stemed from these two things. she fought a hard fight. I hope your precious little girl keeps doing good. We will keep her in our prayer each day. May God reach down his healing hand to her heal her from thins dieaseshere on earth. You can see my little girl at her site at www.caringbridge.org/tn/kayla
May god Bless you.
April Harris <sh6Hrr@aol.com>
Charlotte, TN USA - Wednesday, November 12, 2003 4:45 PM CST

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Hello ~ Alli
I just wanted to touch base, and let you know that I have been thinking of you, and miss working with you. My surgery went well and, I will be returing back to work in December. I'm glad that you had fun on Halloween. I'm sure you were adorable!!!!! Take Care Love Madonna
Madonna Mitzel <m.mitzel@bis.midco.net>
bismarck, ND USA - Monday, November 10, 2003 11:16 AM CST

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I'm so glad that Allison recovered from her fall. You certainly didn't need those post-trauma feelings once again. Wonder why we need to relive them? I'm glad that your talk went well...you are an awesome advocate for families. I'll call you soon. Elizabeth is still attached to the bibs.
Roxane Romanic <romanick@bis.midco.net>
Bismarck, ND - Monday, November 10, 2003 9:21 AM CST

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Hey Alli! Just checking to see if you are still eating your Halloween candy?? Ashley is singing next week at the Mall and I will be there.

Hugs and Kisses, Love Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND USA - Monday, November 10, 2003 9:02 AM CST

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BRRR...a cold one here this morning but I just want to send a warm Hello to the girls!!
Thinking of you all this morning.

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND cass - Friday, November 7, 2003 7:20 AM CST

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Sorry to hear about your fall. I hope you have all fully recovered.
Love Tina (Sophie's Mum)
Tina <tina@melroseroad.co.uk>
London, UK - Wednesday, November 5, 2003 9:19 AM CST

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Hi Jenn & Allison, just checking in to see how Allison is doing after her fall, I hope all better now. It's very hard to keep the little ones from climbing and exploring, I know Cade's energy level has sure increased since he's started ERT, really have to watch his climbing. Take Care. Love, Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il USA - Monday, November 3, 2003 10:38 PM CST

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Hi Allison and family!
I am Max's Aunt Dana and want to thank you for your support for our little mighty one! I've checked in on you several times and am so sorry to read today about your fall. I hope that you are back on your feet at this point and back to normal. Don't scare mommy anymore like that! We'll be keeping you in our hearts and prayers as you continue your ERT! God bless you!

Dana Slevin (www.mighty-max.com) <dslevin@comcast.net>
Westchester, IL USA - Monday, November 3, 2003 10:26 PM CST

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You must have been terrified!!! I am so sorry that she fell and got hurt so badly. Her poor little head. I hope she is up and around soon. I would love to send you some of our warmth and sunshine. It is actually a little too hot. I toyed with the idea of turning on the air conditioner but just couldn't bring myself to do that on Nov 3rd. Now I am just torturing you. I can't believe it myself. It is not like we live in Fl or something. I hope all is well soon and I hope that dr. gets his someday for being so awful. Our dr was very nice but did inform me in no uncertain terms that Andrew was going to die and there was nothing to be done. After he found out we were going to Duke for a BMT he advised us strongly against it. I have Dr. K send him all of Andrew's reports now. Ha, Ha to him!!! Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Monday, November 3, 2003 3:32 PM CST

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Hi Alli!!
I cannot believe it, Max was a clown for Halloween too!! I'll have pics on the site soon. You are soooooo cute!! Hope your head is feeling better. We had most of Max and Amanda's cousins over this weekend, so they all have bumps and bruises from a weekend of hard playing. Keep up the good work, we'll talk to ya soon!!
Paul & Max Forand (www.caringbridge.org/nj/maxforand <forandkerrigan@comcast.net>
Millville, NJ - Monday, November 3, 2003 5:19 AM CST

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I absolutely adore the pictures of the cutest little clown and hippy I've EVER seen! We hope the girls had a wonderful Halloween...our boys did!

Love ~ Melanie, Steve, Jake, & Matt
The Irish's <mairish@hotmail.com>
Marysville, WA USA - Sunday, November 2, 2003 9:14 PM CST

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To my Babies! Alli: You are too cute as a clown! (how did your Mom know that you ARE a clown??) Ashley: I hope you had a good time. I know it was cold there that night but I bet you didn't even notice!!
Love the Pictures Jenn. Hope to see you all real soon.

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Sunday, November 2, 2003 10:16 AM CST

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Hi Alli and Family,
Wow! A way has got to be found to keep Alli from climbing short of super gluing her to the floor! I just love the new pics of her in her clown costume and the hippie is soooo cute. I love checking in on Alli and seeing all the new pics. She is so inspirational and always in my prayful thoughts.

Hugs,
Angel Gloria (Smile Quilts) <SimplicityMD@comcast.net>
Owings Mills, MD USA - Sunday, November 2, 2003 7:08 AM CST

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My Alli was a clown for Halloween and Ashley was a hippy! (does she even know what a hippy is??) Alli told me she got lots of candy in her bag. What a clown she really is!!
Hugs and Kisses,
Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Friday, October 31, 2003 10:51 PM CST

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Hey there!
I'm so sorry to here about Alli's fall. We pray that she will recover from it soon. We are also praying for strength for you and Jim and Ashley. Thanks for keeping all of us "in touch" via this web site. I have Alli in my favorites. Sure do love you.
Love, Rachel
Rachel Cremer <isaac@hotsprgs.net>
- Friday, October 31, 2003 9:25 PM CST

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Hey my name is Jenna and I was born with a rare bone disease. Allison is a real inspiration and trooper. I love her smile. She is in my prayyers. My site: http://www.matmice.com/home/fighterandchampion
Jenna <hockeykdi@telus.net>
Kamloops, BC Canada - Thursday, October 30, 2003 11:41 PM CST

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Hi Jenn & Allison, just checking in to see how things are going, sorry Allison had a fall, and hope she is back to herself real soon..Nice to see the pics from the walk/run with Tami, nice to put a face to the name. Praying daily for mighty max, and all MPS children. Love, Chris
Chris Morrissey <crookiemorsi@yahoo.com>
Kewanee, Il. USA - Thursday, October 30, 2003 9:06 PM CST

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Hi Jenn,
What a beauty Alison is! Her smile is captivating!
I want to invite you to have a virtual smile quilt made for Alison to brighten her and your families day. If interested, just click on the above graphic and fill the short application. We'd love to create it for Alison.

Hugs,
Gloria

Gloria <SimplicityMD@comcast.net>
Owings Mills, MD USA - Thursday, October 30, 2003 6:48 AM CST

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Jenn, I love the new pictures of all the Mom's and kids! I, too, read so much about them all and it is so nice having a picture to put with their names. ALL OF YOU, you are in so many people's prayers each and every day. Our kids are who we are.
Love, Janelle
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Monday, October 27, 2003 6:53 PM CST

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Hi Jennifer I was just browsing through family's stories of children with Hurler's. My daughter Amrah was diagnosed in July of 2003 and we are day +19 after BMT. Amrah sounds alot like Allison she dosen't have any developemental delay she is really doing great. I thank God every day for blessing my baby girl. I will pray for your family and it is really great to here allioson is doing so well. God Bless You.
Stacey Peterson <sleighpeterson@hotmail.com>
Estevan, Saskatchewan, canada - Monday, October 27, 2003 4:00 PM CST

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Hi Jennifer I was just browsing through family's stories of children with Hurler's. My daughter Amrah was diagnosed in July of 2003 and we are day +19 after BMT. Amrah sounds alot like Allison she dosen't have any developemental delay she is really doing great. I thank God every day for blessing my baby girl. I will pray for your family and it is really great to here allioson is doing so well. God Bless You.
Stacey Peterson
Estevan, Saskatchewan, canada - Monday, October 27, 2003 3:57 PM CST

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Hi Jen,
It has been too long since I have written. I'm so glad your trip to Calif. was good. You and your family are in our prayers everyday.
Lois Mauch <lmauch@cableone.net>
West Fargo, ND USA - Sunday, October 26, 2003 9:02 AM CST

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We are all holding our breath for Might-Max tonight. Let's generate our support for this brave little one.

Janelle
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Saturday, October 25, 2003 10:48 PM CDT

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It's hard to not just love these kids - Allison is adorable and looks so happy. Do you have any other children?
Thanks for forwarding your website - I really enjoy reading them.
My prayers are with you all!
Sheryl
Sheryl Czekanski <sheryl.e.czekanski@marsh.com>
Fairport, NY U.S. - Friday, October 24, 2003 12:49 AM CDT

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The weary travelers are back and full of stories. Alli could not stop talking about Connor, the clown, the car, the plane etc! She had lots of stories! Can't wait to see all the pictures...Hugs and kisses,

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Wednesday, October 22, 2003 8:56 PM CDT

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Hey there Jenn, Jim, Alli and Ashley!
Welcome home from California! I am so happy that you 2 had such a positive experience!We can't wait for a chance to see you in person and give you a great big hug!
May God richly bless you!

Love, Rachel
Rachel Cremer <isaac@hotsprgs.net>
MT - Tuesday, October 21, 2003 3:12 PM CDT

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Hi Jenn and Allie! Welcome Back!
I am loking forward to hearing all about your trip! So, update soon or CALL ME!
PS Jenn did you get the pics yet? Mom showed me some that you gave her, they are ADORABLE!! I cant wait!
Love,
Jess
Jessica <jshu21@msn.com>
- Monday, October 20, 2003 12:16 AM CDT

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Jenn and Alli, I hope you two are having a GREAT time today. My thoughts are with you all day long. Have a wonderful time!!

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Saturday, October 18, 2003 9:35 AM CDT

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Hi Jenn: Just wishing you & Ali a great trip--our thoughts
and wishes are with you both. Hope the trip is every thing you hope it is! Good Luck and Have FUN--Enjoy!
See you when you both get back. God Bless You Jenn & Allison. All Our Love, Natalie & Family
Natalie & Family
Bismarck, - Friday, October 17, 2003 10:20 AM CDT

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Hi Jenn! I finally had a moment to visit Allison's website. It is wonderful! She looks just as beautiful as ever! I hope you both have a wonderful time in CA!
Jill Grumbo <jill2t@aol.com>
Bismarck, ND USA - Thursday, October 16, 2003 8:04 PM CDT

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Jenn & Allison, have a GREAT trip to CA..so glad things continue to go well for Allison with ERT...her pictures are great, your right Jenn, she has changed alot, you can see that ERT IS working.....Love, Chris, Cade & Nikki Morrissey
Chris Morrissey <crookiemoris@yahoo.com>
Kewanee, Il. USA - Wednesday, October 15, 2003 9:24 PM CDT

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Jim And Jen,
We just recently have heard of your situation with Allie. Our thoughts and prayers are with you.
Blair and Nicole Aasland
Fargo, ND US - Wednesday, October 15, 2003 10:09 AM CDT

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Have a safe and memorable trip to CA! Will look forward to hearing about the run and the conference.
Lisa Post <ltjpost@cox.net>
- Tuesday, October 14, 2003 7:26 PM CDT

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Hi All, I visited Jenn and the girls in Jamstown last night with Jenn's Nana (my Mom). We had such fun with the girls!!! Alli could not get over a Nana and a Nana!! She kept saying...."my Nana, my Mom's Nana!" Too cute!!!!
Good Luck in Calif. and I hope all goes well. Have a GREAT time!!!

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Tuesday, October 14, 2003 7:02 PM CDT

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Are you Ready to come and Visit ME????? I'm going crazy but it should be fun!!! You are going to be my run/walker pointer! It's easy to do and you can do it will Alli!

See you this weekend!
Love and Hugs,
Tami Slawson www.mpsrun.com
La Verne, CA - Monday, October 13, 2003 9:59 AM CDT

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Aillson I'm so glad you are doing so well!!
I'm also glad you no my name.
If you need anything just give Cassidy a call.
MUCH LOVE TO YOU ALLI!!
Love Cami Kraft
Cami Kraft <Basketball_chick92000>
Bismarck, N,D United States - Thursday, October 9, 2003 8:41 PM CDT

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Maggie and Cassie Ali you are so cute!.Ashely you are pretty!. Ashely were BFF
Cassie Kraft <5 Krafts @ bis. mid co. net>
Bismrak, ND United States - Thursday, October 9, 2003 4:52 PM CDT

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Hello, Allison and family, What a precious girl you are. Your big smile reminds me of our 5-year old blond granddaughter, Edie Burke, who has Hurlers. I am sure you are the blessing to your family that Edie is to ours. And how fortunate you are to have a wonderful sister like Ashley to help you when you fall. Best wishes to you all!
Susan McKeithen <scmckeithen@bellsouth.net>
Charlotte, NC USA - Wednesday, October 8, 2003 4:47 PM CDT

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Hi again Alli!! Glad you continue to do well. Be careful on those stairs!!! Max scares me on the stairs all the time too!! Also, hello Edie and Laura!! We met you on May 16th when you were getting your infusion. We were meeting Dr. Meunzer there at UNC. You were so gracious to us, thank you. I hope Edie is doing well with the infusions. She is a beautiful child!! Talk to everyone soon!!
Max and Paul Forand (www.caringbridge.org/nj/maxforand <forandkerrigan@comcast.net>
Millville, NJ - Tuesday, October 7, 2003 11:42 AM CDT

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I love seeing another blonde Hurler girl!! She is sooo cute! My daughter Edie, now 5, is also blonde and has Hurlers. She was the first patient outside of the clinical trials to recieve Aldurazyme (May 16th). It has made a world of difference in her life. We wish so much that Edie could have received it sooner than she did, because the disorder had already made so much progess by this spring. However she is happy again and that is truly what matters. Edie also has what looks like the same little house (as in Ali's picture) that she enjoys. I can't wait to share your website with all our friends and family so that they can delight in Edie and Ali's resemblance.
Laura Burke <burkenc@charter.net>
Asheville, NC - Monday, October 6, 2003 9:58 PM CDT

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My daughter Pam has a brain tumor and has been fighting the fight since November 4th, 2002, after the birth of her daughter (Casey Morgan). My youngest daughter, Karen, set up a caringbridge website for Pam. Karen's friends mother shared a prayer with us, that I would like to share with you and Allison. It's called DON'T QUIT:
Don't Quit -
When things go wrong, as they sometimes will, When the road you're trudging seems all uphill, When the funds are low and the debts are high, and you want to smile, but you have to sigh, When care is pressing you down a bit - Rest if you must, but do not quit. Life is queer with its twists and turns, As every one of us sometimes learns, And many a fellow turns about, When he might have won had he stuck it out. Don't give up though the pace seems slow - You may succeed with another blow. Often the goal is nearer than it seems to a faint and faltering man; Often the struggler has given up when he might have captured the victor's cup. And he learned too late when the night came down, How close he was to the golden crown. Success is failure turned inside out - The silver tint of the clouds of doubt, And you never can tell how close you are, It may be near when it seems afar, So stick to the fight when you're hardest hit, It's when things seem worst that you mustn’t quit.(Just call on Jesus).

Prayers have scientifically been proven to work.

REMEMBER NEVER GIVE UP THE FIGHT. You are in our prayers. GOD bless you all.

Frank father of Pam (www.caringbridge.org/ny/pamostrowski) <frmurato@nyct.com>
SYOSSET, NY USA - Monday, October 6, 2003 2:24 PM CDT

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Good Morning Jenn, I am so excited for you and Alli to go to Calif. and meet people you have been corresponding with this last year. You two will have such a good time. I am still working on getting pledges for the walk/run. I am so happy do feel like I am actually DOING something!
My Mom arrives in Fargo tomorrow (thank goodness the weather is cooperating and temps will be in the 70's!!)from Mississippi and then a fast two weeks will go by.
Have a great week girls and can't wait to see you all next week before you leave.
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n cass - Monday, October 6, 2003 6:30 AM CDT

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Hello Jenn, Alli and family,
In a family with six+ young cousins, we've seen one or two try to tumble down the stairs! Thank God for big sisters! We are so happy to hear that things continue to progress and go well for Allison. Please know that we check in often and appreciate when you check in with us. Have fun in California!!
Paul and Max Forand
- Sunday, October 5, 2003 1:07 AM CDT

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Phew! That was close!! Thank you Ashley!!!!
Lisa Post <ltjpost@cox.net>
- Friday, October 3, 2003 10:48 PM CDT

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Hugs and Kisses Girls, I am working hard at finding sponsors for the Walk/Run for MPS in Calif. My friends will all help because you are so very special Alli!

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n cass - Friday, October 3, 2003 5:54 PM CDT

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Hello. We are new to your site. I am glad I found it so that I can keep up on Allison. She sure is a cutie! I try to check on all MPS kiddos that I know of very often. Glad to hear that the infusions are going well. Take care and may God Bless. Give Allison a big hug and a kiss from Laney.

caringbridge.org/tn/laney
Beth Anne Biggs <bigg6550@bellsouth.net>
Rogersville, TN - Thursday, October 2, 2003 11:33 PM CDT

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Ashley! You are truly the best big sister ever! (and I use to think your Mom was (grin)) Thank you for "saving" Allison. That will be one story you can tell forever and make it as BIG as you want!!
Once Again Honey, I want to tell you how wonderful I think you are.

Hugs and Kisses, Nana
Janelle Schumacher <Shoe1115@yahoo.com>
Fargo, ND Cass - Thursday, October 2, 2003 1:31 PM CDT

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My Baby Alli, I hope all went well today as you made yet another trip to the hospital. I was thinking of you all day!! Miss you.

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n cass - Wednesday, October 1, 2003 9:36 PM CDT

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Hi Alli, I am so excited that you are flying to Calif.!! I am working hard so I can send a big check with you for research of MSP1. I want lots of pictures!!

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Monday, September 29, 2003 7:38 PM CDT

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Jenn,
From reading your journals it sounds like you've been through so much and you've had to ask yourself so many difficult questions. Believe in yourself and in your child. You are a wonderful mother and Allison sure seems like a beautiful girl. Your love is strong for her and you are doing a great job. We know you are supporting us and all the MPS kids and you should know that you have so much support coming back as well.
Mike Ciacciarelli (Max's Dad) <http://www.mighty-max.com>
- Friday, September 26, 2003 12:27 AM CDT

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Jenn and Jim, I am so glad Alli's lastest infusion went so well. It is amazing how children adjust! Keep holding that baby tight and the rest of us are right behind you.

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Friday, September 26, 2003 7:27 AM CDT

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Hey there Jenn!

I was glad to read you are back from Fairview and that Alli is progressing well! I am also excited that you and Alli have a chance to go to California and meet with other families and supporters who are going through similar trials. We definatly are praying for you guys and praise God for the way he has been so faithful.

Love, Rachel
Rachel Cremer
- Thursday, September 25, 2003 1:28 PM CDT

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Oh Jenn, You are making the right choices for Alli....right now. What more can a mother do? We all live moment by moment. Don't worry Honey, you are doing the best you can and we all stand by you.
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Wednesday, September 24, 2003 3:47 PM CDT

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I can hardly wait to see all of you. I think of you all

of the time and hope and pray all will be well. Nana from Ms.
Janice Bowe <JBo811@aol.com>
Diamondhead, Ms. - Tuesday, September 23, 2003 10:20 PM CDT

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Hey Sweetie,

I know you are making the right choice for Allison!! If she was having problems with GAG buildup in the brain then I would be the first to be screaming for Alli to have BMT. I also believe that everything including you coming to California is in God's plan. So keep the faith, Stop worring, and come to La Verne and have fun! God will do everything else!

Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
LA VERNE, CA - Tuesday, September 23, 2003 2:25 PM CDT

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Welcome Home Restemayers!! :)
Hope things went well at the wedding! It was so fun to see all of you on Saturday! I hope the girls like their new outfits, you'll have to take pics of them for me......what a CUTE pic of ALLIE on this site!! She is getting so BIG!
Tell Allie that her Jessica misses her already!! and let me know more about your trip in October, ok?
Try to rest tonight, and we'll talk soon...kisses to Ash and Allie.
Love, Jess
Jessica <jshu21@msn.com>
Eau Claire, WI USA - Sunday, September 21, 2003 4:01 PM CDT

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Hi Allison,

I am Max's G-Pa J.

Glad to hear things are going well for you - keep up the good work. You are from ND - a really neat state!!!
Max's G-Pa J.
Burbank, Il USA - Saturday, September 20, 2003 11:41 AM CDT

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Alli, Ashley, Mom and Dad, I hope all went well today and you are going to enjoy the rest of your weekend. All went well at the Daycare and the kids were so good!!! I really had a good time. I locked up and left about 5:45pm. If the kids are awake when you come through Fargo, please stop for a quick snack.
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Friday, September 19, 2003 8:57 PM CDT

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Allison,
We heard our neighbor at RMH saw you in clinic today. We hope your appointments went well and that you are not too tired. They really keep you on the move with all of those check-ups!
Margaret Ciacciarelli <www.Mighty-Max.com>
- Thursday, September 18, 2003 3:04 PM CDT

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The Daycare is going really well. Chocolate chip cookies were made today and now we are waiting for the school kids to come for a treat of milk and cookies! Thinking of you all as you must be done with today's tests.
Hugs and Kisses.
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND cass - Thursday, September 18, 2003 2:39 PM CDT

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Enjoy Minnesota! Glad to see your still doing wonderful! Love the pictures you have on the page!
Jennifer Awrey <cobra46227@yahoo.com>
Indianapolis, In - Thursday, September 18, 2003 12:16 AM CDT

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Just checking in to how things are going.

The photo's are great.

Love
Tina,Padraic,Amy and Sophie
Tina (Sophie's Mum)
UK - Thursday, September 18, 2003 3:30 AM CDT

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Hi. We have been thinking about you all. We check in on you every night. We are so glad for all the progress you have made. We will be in the cities over the weekend. Hope to see you. We will continue to look in on you. God bless you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Gilbert, MN - Wednesday, September 17, 2003 11:30 PM CDT

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What a lovely child!
Stephanie Bjornson <stephanie_bjornson@dorgan.senate.gov>
Washington, DC 20510 - Tuesday, September 16, 2003 8:27 AM CDT

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Hi--Good luck to all of you on your trip to Mpls. It was fun to check out this website and learn a little bit about Allison. What an incredible journey you are all on. I will add you all on my prayer list . I am enjoying having Ashley in my classroom and getting to know her. She is a dellightful little girl and I can tell she comes from a great family.
Sonja Mahlum <sonjamahlum@educ8.org>
Bismarck, ND - Monday, September 15, 2003 7:50 PM CDT

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I just wanted you to know that I check in on you guys every week. It is nice to see her smiling face on the webpage. Enjoy your trip to MN and have fun with all of the appointments, but they will test your patients. Lots of hugs and kisses and of course our prayers.
xoxoxoox......Jeanne
Jeanne Joiner <jeannejoiner@hotmail.com caringbridge.org/ok/rileybear>
Del City, OK USA - Monday, September 15, 2003 10:46 AM CDT

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Thank you so much for the prayers for Max. Allison is a cutie. We have visited your site many times and are pulling for her.
Margaret Ciacciarelli <www.Mighty-Max.com>
- Sunday, September 14, 2003 5:01 PM CDT

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Hi All, I went out today and got carrying packs for the car ride for both girls. I know that you will have plenty of things for them to do but "some" more won't hurt!! I am gearing up for the DayCare :-) I'll be there before noon and will see you all then.
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Saturday, September 13, 2003 8:36 PM CDT

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Dear All, It is so very sad to hear of another child who God has called. I know that we all this...what if this was ours? I know when my brother died, pain like that I have never felt. Death is so very hard and it hurts so much. Tears can't take away the pain but tears are a part of the process. Jenn and Jim, I pray every day for Alli and I know that there is a lot of people sending prayers. The networking is so wonderful that I hope all our friends out there feel the comfort...and the pain...and the joys. Love binds us all together and yes, we all feel the pain when another baby is taken. Hope is enternal and I send that hope to all. I love you.
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Wednesday, September 10, 2003 11:43 PM CDT

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It warms my heart to read all the improvements the ERT seems to be making with little Allison! There's so much hope in that! I love her pictures...she reminds me so much of friend's little girl!
I was so sad this morning to read about AJ. I have followed his journey for a very long time. I'm praying for Max..he seems to be a strong little fighter and I know he will get through his latest pitfall.
God Bless all the little children!!!!
Love, Lisa Post <ltjpost@cox.net>
- Wednesday, September 10, 2003 8:05 PM CDT

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Thank you so much for checking in on Max. We check your site often and are glad to hear things are improving with ERT. What a beautiful little girl you have!
Margaret Ciacciarelli <www.Mighty-Max.com>
- Tuesday, September 9, 2003 0:57 AM CDT

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Just checking in to see how you are! I will keep my eye out for the "swing" pictures! Praying for you all, Cathy
Cathy Peters <www.caringbridge.org/canada/isobel>
St.Albert, AB Canada - Monday, September 8, 2003 8:54 PM CDT

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dear Alli, Your tears I carried with me all the way back to Fargo. This little girl, who swings by her arms and jumps from high places is a gem! She loves her Nana and believe me, rules the roost...as any two year old does! She sings "Twinkle, twinkle, little star" at the top of her lungs and has a heart of gold. Little baby Alli (who tells me she is a BIG girl!) is a delight. Jim, Jenn, and Ashley--you all have done such a super job taking care of our gift from God.
I will see you all in one and a half weeks before you head to the next series of tests. Thanks for a great weekend girls and Jim!!

Love and hugs to all!!
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Saturday, September 6, 2003 8:12 PM CDT

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We are glad to read that Allison is doing so well. We haven't signed in a while, but wanted to let you know that we are praying for you guys. God bless you,
Debbie, Greg and baby Noah
The Prichard Family <www.caringbridge.org/hi/noah>
Honolulu, HI USA - Thursday, September 4, 2003 11:49 PM CDT

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Hi there!
Just checking in with all of you. So good to hear things are going well for you. Love you all.

Love, the Cremers
Rachel Cremer
- Thursday, September 4, 2003 2:00 PM CDT

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Hi All, I hope today went well. I am finally home for the night (9:53pm) but do not want to call so late. I am thinking of you all and will call tomorrow to see how the day went. See you all on Friday!!

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Wednesday, September 3, 2003 9:55 PM CDT

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What beautiful pictures of both the girls!!!!!!!!! I can hardly wait to see you all on Friday. School starting is just as hard on the teachers as the students!! :-)
See you all soon! Ashley, I see your Mom when I look at your 3rd grade picture. You are a beauty, just like her!!
Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Tuesday, September 2, 2003 6:18 PM CDT

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Hey Allison, Ashley, Jennifer and Jim,
Sorry we haven't said hello in a while. It's been a busy summer, but please know that we check in at least weekly! Isn't it cool to know the day that your "internet" friends have their infusion? And people you've never met in person feel like close, personal friends? We love the new pictures -- Allison is a doll! Allison is actually a household name in the Forand family. Continued best wishes and support! We promise we'll be back to say hello more often!!


Paul and Max Forand <www.caringbridge.org/nj/maxforand>
- Tuesday, September 2, 2003 0:05 AM CDT

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Hi Guys,
Please let us know if there is anything we can do when you come to Mpls. We would love to watch the kids if you want to stay at the wedding. We also have room if you want to stay with us. McKenzie and Haydn would love to play with Ashley... and... Lucas and Allison would be quite the pair I have a feeling.. Please let us know. I'll try and get ahold of you next week. Thanks for all of the updates. We think of you often.
Chad, Jane, McKenzie, Haydn and Lucas Becker <Mckaydas@aol.com>
Andover, MN - Sunday, August 31, 2003 7:07 PM CDT

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Way to go Baby Doll! Another trip to the hospital and all is well! Your Mommy tells me that it was fine. You are so brave! I'll see you in another week and you can tell me all about it. I have started to "collect" birthday gifts for you. I hear you are saying what kind of a birthday party you want...in 6 months! Too funny!!! That's OK Alli, we will celebrate every time we see each other!

Hugs and Kisses, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Thursday, August 28, 2003 3:45 PM CDT

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Alli, I hope today went just great. I was thinking of you all day! Hugs and kisses and kisses and hugs!!!!!
I will call tonight and talk to you on the phone. Keep your spirits up Jenn! All this good news...we are so lucky!

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Wednesday, August 27, 2003 6:42 PM CDT

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She is really cute. You are going to see all the Doctors' my first duaghter saw before her transplant. Have a good time and take her to Mall of America. Tasha loved that. Keep in touch.
Maria Tuckett <mariaetuckett@aol.com>
murray, ut 84123 - Monday, August 25, 2003 11:01 AM CDT

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Jenn,
Hi. Cute picture of Allison in her 4th of July dress. Ellie had the same one....Old Navy....great place. I am glad to see everything continues to go well with Allison's treatments. Happy belated birthday! Turning 30 is hard. I know all about it. Things are crazy here...I just started back to school. I will give you a call soon. You are always on my mind. Love, Kara
Kara Johnson <kjohnson@medicine.nodak.edu>
Grand Forks, ND USA - Wednesday, August 20, 2003 12:38 AM CDT

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Another Weds. is coming up. Good Luck and I hope there are no temps. tomorrow!!
I will call tomorrow night.

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Tuesday, August 19, 2003 7:09 PM CDT

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Happy Birthday, Jenn & hope you had a great one too!!!!!
Allison, you look terrific and are so adorable too.....
and Ashley Thank you for being a bestest friend to Cassidy,
she really enjoys your friendship and being her backyard pal!!!!! Keep getting better cutie, Ali.....
Natalie Kraft <5krafts@bis.midco.net>
Bismarck, ND Burleigh - Saturday, August 16, 2003 8:03 PM CDT

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Hi Girls and Jim!! I talked to Jenn yesterday and Alli got through her infusion without a temp. this time!! Yea!! One little worry-------gone for this week.
Temps have been hot, hot, hot in Bismarck. I bet the little one's have been using the water slide all day long!
Happy Birthday to my Baby... Jenn!! She will be.....(ok Dear, I won't tell everyone how old you will be on the 16th!!) Ages us all somehow. LOL
Have a great birthday and count your blessings Jenn. You have three of the best one's living in your home.

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND cass - Thursday, August 14, 2003 6:26 PM CDT

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Jenn!
I just read about your last entry about Allison's doctors info. It sounds like you will find out more when you head to Fairview. I'm hoping that the doctors will tell you more about what her numbers REALLY mean! Everything sounds so contradictory, but i guess thats how it goes........i will just continue to pray that Alli keeps making improvements. Give Allison kisses for me and tell Ash and Jim I say hello...I love you all, and Alli's pictures are adorable!! :)
Love,
Jess
Jessica Schumacher
Fargo, ND - Monday, August 11, 2003 9:58 PM CDT

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Cute pictures little one!! I am back from Wis. and moving Aunt Jessica in for her first year of teaching. Thinking of you and hoping for another good Weds.!!! Hang in there Jenn. Don't worry because what will be, will be. We are aollo in this together.

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Monday, August 11, 2003 9:46 PM CDT

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So happy to read the ERT is helping so well!
Love, Lisa Post <ltjpost@cox.net>
- Saturday, August 9, 2003 7:51 PM CDT

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Hi All! I have been out of town all week but had to check in to read all about last Weds. Way to go Alli!!!!! A 2 year old is ALWAYS busy....one forgets how they keep moving! :-) Don't worry Jenn...it only last for a year! lol
I am off to move Aunt Jessica tomorrow. Just got back tonight about 11:30pm. We have a long drive ahead of us and then my last baby is on her own! (see Jenn, they all grow too fast....remember when Jess was 2 years old?)
I'll call you over the weekend.
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Saturday, August 9, 2003 0:31 AM CDT

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We are so happy things are going so good. I love the pictures they are so cute. She is even cutier than before. This children are so amazing. We continue to pray everything continues to go smooth for you all. Have a great rest of the summer. We will keep peeking in on you.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Friday, August 8, 2003 11:55 PM CDT

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It is so great to hear those levels come down!! It is great to know it is working in your heart but it is nice to get concrete numbers to prove it. It is so great to hear how much energy Allison has. Now if we could just get some for ourselves. Anne
Anne Himes <www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, August 8, 2003 11:43 AM CDT

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Alli, I am waitng to hug and kiss you for the next two days. You are so special and I love you to pieces!!!!

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Friday, August 1, 2003 9:17 PM CDT

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Way to go Allison! Keep up the great work, we will keep praying for you and your family. God Bless.
Meghan, Jordan and Katelynn
Red Deer, AB Canada - Thursday, July 31, 2003 10:45 PM CDT

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Hi Allison,

You are just too cute! Please tell your mommy "thank you" for the email. We will continue to check in to see how you are doing. I hope that you are having a wonderful day!

Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net>
- Thursday, July 31, 2003 10:25 AM CDT

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Hi, all! The new pictures are too cute! I hope it went well today. Just wanted you to know we're thinking of you. Sending lots of love your way.
Becky, Tom, Jacob, Brenden, and, Cassidy O'Meara <omeara@monetbroadband.net>
Moorhead, Mn USA - Wednesday, July 30, 2003 9:21 PM CDT

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Double digits in infusions this week. 10 already!! Wow, when you wait for something and then the weeks go flying by with such results....you wonder why all the worry?
Good Luck tomorrow and may there be hours of sleepy rest!!
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Tuesday, July 29, 2003 8:15 AM CDT

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Hi to all. I have been thinking of you often. I haven't had a chance to sign in. I am so happy things are going good. We continue to hope and pray for only good things. Ali's pictures are so adorable. She is so precious. God bless you all.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Saturday, July 26, 2003 11:48 PM CDT

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I love the fun new pictures! Looks like a blast! Happy belated B-day to Ashley. It is good to hear that the infusions are going well with Alli. We will pray that she isn't getting any kind of bad reaction. Just wanted to send lots of hugs and love your way!
Love, the Cremers
Rachel Cremer <isaac@hotsprgs.net>
Hot Springs, MT US - Thursday, July 24, 2003 9:25 PM CDT

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Aloha,
We found your site via Taylor's site and wanted to stop in to visit and offer our support and encouragement. Our son, Noah, has Krabbe. It sounds as if Allison is doing well, despite having to get the pokes. God's blessings to you all and we pray that Allison continues to only improve.
Peace and Aloha,
Greg, Debbie and baby Noah
The Prichard Family <www.caringbridge.org/hi/noah>
Honolulu, HI USA - Thursday, July 24, 2003 6:47 PM CDT

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Allie, you are such a big girl taking your medicine so good!!! I am glad things are going well and anticipate more good news as the process continues!
Love, The Ramsey's
Nancy and Sam (Nolan Ramsey MPS-1-H www.caringbridge.org/co/nolanramsey)
- Thursday, July 24, 2003 11:20 AM CDT

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How cute! I am glad she doesn't mind going, that makes it so much easier for you. We're praying the fever doesn't come anymore.
Jennifer
Jennifer Awrey <ammawrey@aol.com>
MEsa, AZ - Wednesday, July 23, 2003 11:20 PM CDT

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Thinking of you Alli as you have the 9th infusion. Good Luck Jenn! I'll call you tonight.

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Wednesday, July 23, 2003 7:47 AM CDT

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Glad to know the kids had a great time. Have a happy birthday Ashley. New e-mail address.
Jennifer
Jennifer Awrey <ammawrey@aol.com>
Mesa, AZ - Monday, July 21, 2003 10:54 PM CDT

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It was a birthday party that never ended! All those kids jumping and jumping. Alli was so much fun to see doing all the same things the big kids were doing. Ashley is such a wonderful big sister that Alli does what she does! What a super role model!!
Good luck Baby Doll...Be brave tomorrow and lots of hugs and kisses! XXXOOO Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Monday, July 21, 2003 10:32 PM CDT

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Hey guys!! I started writing a few times and got busy. Happy Birthday Ashley!! I think Alli is getting as much energy as Max, he's non-stop as well. I love that she sings Twinkle Little Star. Max sings that and the ABC song, but with his speech it's sometimes hard to tell which one. They should make that melody the MPS theme song!! Good luch this week. We'll keep you posted.
Paul & Max Forand (www.caringbridge.org/nj/maxforand) <forandkerrigan@comcast.net>
Millville, NJ - Monday, July 21, 2003 10:12 AM CDT

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Happy Birthday Ashley!!!!!!!!! I hope your day is wonderful! Have a great party!

Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Saturday, July 19, 2003 10:41 AM CDT

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Hi! I think that it's amazing that you are starting to notice a difference already with the ERT! Congratulations Allison! I know that this is going to be the start of your miracle!
Love, Cathy
Cathy Peters <www.caringbridge.org/canada/isobel>
St.Albert, AB Canada - Friday, July 18, 2003 8:21 PM CDT

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Hey Girlfriend!

I will call you later but I wanted to say hi here too. Sami has the bumpies too. I never thought that is was MPS related either. That cool! I will be watching for improvement in her skin. I'm so glad Alli is doing so great! I knew she would!! Everyday I thank God for this new treatment. I'm so happy for all our MPS1 babies! It's so great that we all can compare notes on improvements. I learn new things about this disease daily due to the new treatment!

I will call you later!
Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Thursday, July 17, 2003 9:34 AM CDT

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Oh Allison! I can't wait to squish you!!!!! I will come on Friday so I can play with you before your nap. Then I will spend the afternoon with Ashley on her last day at age 7.

My heart, too, breaks with the knowledge of the many angels BUT it also swells with every positive step taken by so many out there. Each achievement is all of ours as each heart break is shared and comforted by all.

Take care of yourselves. Hugs and squishes!!
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Wednesday, July 16, 2003 10:25 PM CDT

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There is a lot of 8's going on in the Restemayer house this week! Allison is now receiving her 8th infusion and Ashley is turning 8 on Sat....let's see. I think I have exactly 8 presents, wrapped and labeled with Ashley and Allison's names on them!!!!!!!!
I'm so excited to drive to Birmarck to see the girls (Jenn, Allison and Ashley) and Jim. See you all soon.
Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Wednesday, July 16, 2003 8:50 AM CDT

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Hi guys!! I just thought I would check to see if there was an update. I was happy to find more good news. Yeah!! I am glad things are going so well. I love the pictures too. Keep the good news coming ok!! Love, Kara, Garret and Ellie


Kara Johnson <kjohnson@medicine.nodak.edu>
Grand Forks, ND USA - Tuesday, July 15, 2003 6:29 PM CDT

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What A Gorgeous little girl you have there in Allison. Our Little Chloe is Still doing very well but obvisiouly we are waiting to see if the Australian Government will Authorise the Treatment. Sorry it has been ages since we last send you an e-mail. Chloe's Web page is coming along however it is slow going as I am trying to compile acurate medical information Kind of like a one stop web page you will be among the first to know when it is ready. Your recent photos remind us so much of Chloe it is like looking at twins. Glad it is all going really well for you Allison keep up the great fight and don't lose your happiness.

We have a new e-mail address please see below to get in contact with us
Grant & Jo Ellevsen <grant_74iprimus.com.au>
Brisbane, Qld Australia - Tuesday, July 15, 2003 5:40 AM CDT

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HUGS/HI'S to both girls. Ashley is going to be 8 very soon. Looking forward to coming next week!!!

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Friday, July 11, 2003 9:57 PM CDT

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Hi everyone in Restemayer land. We are so glad to hear the
treatments are going well. We hope to see you soon and check
on Alli, until then, take care and lots of love.



Tim & Sherrie Moore
- Friday, July 11, 2003 4:51 PM CDT

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Hi! Just want you to know that I am always thinking of you and praying for Allison to keep doing well; I am so happy to hear how she's done so far! Keep in touch. Love and hugs.
Becky O'Meara and family <omeara@monetbroadband.net>
Moorhead, MN USA - Wednesday, July 9, 2003 11:49 PM CDT

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Hi All- I watched Saving Ryan again tonight. Such a wonderful story. I have added him to my prayers and there will not be a day that goes by without me thanking Ryan's Dad for his strength to find a way to make it happen!!
Thinking of you all!
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Monday, July 7, 2003 8:27 PM CDT

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Keep up the great work Allison! Glad Ashley got to go with you. Well keep praying
Jennifer
Jennifer Awrey www.caringbridge.org/me/morgan <ammawrey@cableaz.com>
Mesa, AZ - Monday, July 7, 2003 3:58 PM CDT

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Hey Sweetie!

I'm going to call you later but keep your chin up. ERT is working! Try not to worry about what bad things can happen and just focus on what great things that are happening!

I'm so proud of Alli! Soon we will be laughing about why we were so worried about MPS!!!!!!

Love and Hugs,
Tami
Tami Slawson www.caringbridge.com/ca/slawson or www.mpsrun.com <TLSlawson@aol.com>
La Verne , CA - Monday, July 7, 2003 9:39 AM CDT

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Good Morning Girls! I am back to Fargo and can't wait for Ashley's Birthday party. I can hardly believe that she will be 8 years old!!!!!!!! Thinking of you all and will see you soon.
Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Monday, July 7, 2003 7:22 AM CDT

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Jenn, your mom left today and I miss her. I've seen the pivtures of Allison and how wonderful she looks. I am so happy that she is getting the treatments and they seem to be working. I think of you always and what a wonderful Mom and Dad you two are. My love to you all. Nana 2
Janice Bowe <JBo811@aol.com>
Diamondhead, Ms Hancock - Sunday, July 6, 2003 11:18 PM CDT

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Jenn, your mom left today and I miss her. I've seen the pivtures of Allison and how wonderful she looks. I am so happy that she is getting the treatments and they seem to be working. I think of you always and what a wonderful Mom and Dad you two are. My love to you all. Nana 2
Janice Bowe <JBo811@aol.com>
Diamondhead, Ms Hancock - Sunday, July 6, 2003 11:18 PM CDT

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Hi Alli!! Sorry I haven't written. Glad to hear your infusion went well. Max took a nap during his this week as well. Keep us posted!!
Paul Forand (www.caringbridge.org/nj/maxforand) <forandkerrigan@comcast.net>
Millville, NJ - Friday, July 4, 2003 11:07 AM CDT

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I too Jenn watched "Saving Ryan". The same reaction went through me but the strength of one man and his fight to say "no, he would not die" was amazing!! Think of the power of us all together. Help from family and friends is what we all lean on and Alli has to know that she has lots of both!! We can't change how things are but the pathway can be altered.
I am so glad Ashley went with you yesterday. You are so right with her needing to see what goes on first hand.
Another week down Jenn! Good for Alli!!
Hugs and Kisses, Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND Cass - Thursday, July 3, 2003 4:10 PM CDT

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Happy 4th of July to you all! Alli and Ashley, your Grand Grandmother and I sent you our wishes for a great 4th of July!! It is nice here in Mississippi and we are busy just about every minute. Thinking of you all.
Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND Cass - Wednesday, July 2, 2003 10:29 AM CDT

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Good morning to the Family,
I am so glad to hear things are going well for Ali. The pictures are great. Ashley, you are such a beauty and a wonderful BIG sister I'm sure. Ali, what a joy to see you play on your tummy with a smile that comes right through the computer and makes everyone else smile with you. Our prayers and prayer chains continue here in Fargo. Love to all. Bob, Lois, Emelia, Katrina, and Evan
Lois Mauch <lmauch@cableone.net>
West Fargo, ND Cass - Tuesday, July 1, 2003 10:28 AM CDT

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The pictures of Alli and Ashley are great! We are so glad the infusions are doing so well with her. What a blessing! We love to keep track of how you are doing - thanks for keeping all of us updated!

Love, Rachel, Jake and Isaac!
Rachel Cremer
- Monday, June 30, 2003 10:22 AM CDT

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Hello, your daughter Alli is a very beautiful girl and were glad to hear that she's doing well. Your family is in our thoughts as well as in our prayers. Love, Chris, Chasity & Bayley
Chasity Clark <Chasity_Clark@hotmail.com>
Walhalla, N.D. United States - Monday, June 30, 2003 0:59 AM CDT

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I am finally coming out of "My World" and feel strong enough to visit others. It shows that Alli is a beautiful little girl inside and out. I am so very happy that Alli's infusions are going well. It gives me so much hope for all MPS kids to have the Aldurazyme as an option. I wish your family the very best. I will keep Alli in my thoughts and prayers.
Kim Forand
- Saturday, June 28, 2003 5:19 PM CDT

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Good night Alli, I love you.
Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Friday, June 27, 2003 9:16 PM CDT

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The new pictures are great! Alli is so sweet! So glad to hear the ERT is working well for her! God Bless!
Love, Lisa Post <ltjpost@cox.net>
- Friday, June 27, 2003 4:16 PM CDT

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Way to go Alli! Thats great that your liver and spleen are almost the same. Keep trying hard I'll be praying for you.
Meghan Schroeder <CV051@cv.wolfcreek.ab.ca>
Red Deer, AB Canada - Thursday, June 26, 2003 10:08 PM CDT

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Alli, you look GREAT! Sorry you've got an ear infection, but hopefully the antibiotic will get you feeling better quickly. Congrats on getting through #5, keep up the good work!
Kris Klenke <kris@mpssociety.org>
Worden, IL - Thursday, June 26, 2003 8:31 AM CDT

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Hi Alli!! Congrats on Number 5!! Love the pics, the tummy looks great. I'll have to keep an eye on Max's. He goes for number 2 today. The only down side is he loves to show off his tummy to his Pop-Pop. It's very cute. I hope you feel better Alli! Talk to ya soon!!!
Max & Paul Forand (www.caringbridge.org/nj/maxforand <forandkerrigan@comcast.net>
Millville, NJ - Thursday, June 26, 2003 7:16 AM CDT

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Alli, I just looked at the pictures of your new tummy, you look beautiful. It was so fun to see you and Ash last week, I hope to come and visit soon! I love you and am so proud of you. 5 weeks!
Aunt Jessica <jshu21@msn.com>
Fargo, ND - Wednesday, June 25, 2003 10:40 PM CDT

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OH MY GOD! How wonderful her tummy looks! I so can't wait to see the same in Jacob and Sami! I'm so sorry Ali had a hard day!! Next week will be better when she feeling better! Way To Go Ali! Keep up the good work!!

Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
- Wednesday, June 25, 2003 10:38 PM CDT

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Alli, Your tummy looks beautiful!! Ashley, you are such a GREAT big sister!! Cute pictures Jenn.

Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Wednesday, June 25, 2003 10:34 PM CDT

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Jenny, you have done such a great job on this webpage! I feel very up-to-date though many miles away. I will keep Allison in my thoughts and hope for the very best. Love, Mandi
Mandi Erickson
Durango, Co USA!! - Wednesday, June 25, 2003 9:36 AM CDT

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Hey Jenn!

Good Luck today! Happy number 5!!! I know Alli will do great! I think the drainage is a good thing! It means her body is getting all the extra gag's out!! Yeah!!Lets just hope she doesn't get an outer ear infection :( Just pray for no "Stinky Ear" :) I'm praying for you both! Talk to you soon!

Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Wednesday, June 25, 2003 6:12 AM CDT

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Good luck on number 5!!! I have to laugh, because Max says the same thing, ALL DONE, ALL DONE!! Keep us posted on how Alli's doing, we're thinking about her.
Paul Forand (www.caringbridge.org/nj/maxforand) <forandkerrigan@comcast.net>
Millville, NJ - Tuesday, June 24, 2003 3:47 PM CDT

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Hi Jenn, I am so glad you got some rest after the sale!! I can just see Alli running at the zoo. Rain, rain and more rain here in Fargo. I am making chili (that's how bored I am from being kept indoors!!) and planning on walking outside soon. I think the rain in gone.
I will check out the additional site...
Thinking of you and Alli as another Weds. comes...

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Tuesday, June 24, 2003 11:30 AM CDT

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Hi from MN, Just checking in on you. I am so happy to hear things are going so great.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls, MN - Saturday, June 21, 2003 10:46 PM CDT

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Dear Jenn, Jim, Ashley and Alli,
I am so happy to hear that the treatments are working so well already! I think about all of you so often and check the website almost every day.
We are going to see Grandpa next week. Haven't been there yet since we came back from AZ.
Love, Aunt Kay
Kay Engels <kayengels@gbronline.com>
Anoka, mn USA - Saturday, June 21, 2003 1:46 PM CDT

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YEAH Alli! Congrats on number 4!!!! You are very brave! I'm so proud of you and your mom! Keep up the good work! We are all watching your progress! Jacob and Sami say HI!!

Love and Hugs,

Tami www.caringbridge/ca/slawson/ <TLSlawson@aol.com>
- Saturday, June 21, 2003 12:41 AM CDT

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Hello My name is Jenna, and I was born with a rare bone disease. Allison is a real cutie! She is an inspiration, and an encouragement to me. Allison has a beautiful smile!
my page is: http://www.matmice.com/home/fighterandchampion
Jenna <hockeykdi@telus.net>
Kamloops, BC Canada - Saturday, June 21, 2003 1:50 AM CDT

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I just happened to come across your website -- I'm really happy that Allison's Aldurazyme infusions are going so well! My son Max (diagnosed with MPS I in March) just started his treatment this week. I hope he does as well as Allison seems to be doing. Good luck to Allison and her family!

Paul Forand (www.caringbridge.org/nj/maxforand) <ForandKerrigan@comcast.net>
Millville, NJ - Friday, June 20, 2003 9:18 PM CDT

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I went to Bismarck today to visit Jim, Jenn, and the girls. I can't tell you how wonderful Allison is!! She is a bright button who babbles all the time. She looks so much better with a flatter tummy and she seemed taller to me as well. When results are seen visually like this with one month's worth of treatments, one can't help but feel like all is right.
Good work Jenn and Jim with Alli's progress! Jenn, you are so wonderful with her and all the daycare kids. They are lucky to have you as their provider. Together, we will all make it through! Alli has such wonderful parents and it is a joy to see all the love in that house.
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Friday, June 20, 2003 8:51 PM CDT

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Hi, I got Allison's web site off Taylor McClung's. I love the Hurler kids. Allison is beautiful. She looks just like my Morgan, but blond hair. This is my first time visiting your site and I am glad you had this option to do, I don't know anyone else who has tried it. When we found out about Morgan we had no other choice, but transplant. I'm glad it is working out for Allison! Hope you are doing well.
Jennifer Awrey ammawrey@aol.com <caringbridge.org/me/morgan>
Mesa, AZ - Friday, June 20, 2003 1:48 PM CDT

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I'm so happy to hear how well Allison is doing! Keep up the good work Allison. God Bless!
Kris Klenke <kris@mpssociety.org>
Worden, IL - Friday, June 20, 2003 8:22 AM CDT

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Yeah Alli! Keep up the good work! Jen I will call you later and give you all the great news!

Love and Hugs,
Tami <TLSlawson@aol.com>
La Verne , Ca - Thursday, June 19, 2003 5:14 PM CDT

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I can't wait to see Alli and Ashley tomorrow. Jessica and I will travel to Bismarck to help out so Jenn can get ready for her sale. I will be up early to hit the road!
I got swimming goggles for both girls today at Sam's Club.
I smile and smile when I read your entries Jenn. Such good news to share. See you all tomorrow.
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Thursday, June 19, 2003 11:56 AM CDT

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Jenn, Jim, Ashley, and Alli
I just wanted to drop a line to tell you that you are always on my mind. I am so happy to hear how well things are going for Alli. Alli - you are such a strong girl. I am so proud of you. Jenn - give Alli a hug from me. Hang in there!
Kara Johnson <kjohnson@medicine.nodak.edu>
Grand Forks, ND 58201 - Thursday, June 19, 2003 10:55 AM CDT

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Alli- Just thinking about you and hoping your morning treatment is going well. Hope she slept for you Jenn!! Talk to you all later today.

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Wednesday, June 18, 2003 11:04 AM CDT

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Hi Jennifer -
Thanks for sharing Allison's webpage! We all hope and pray for the best! She always brings a smile to our face at the clinic.

Michelle, Jodene, and Linda
Bismarck, ND Burleigh - Wednesday, June 18, 2003 6:39 AM CDT

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So glad to hear things are looking good!!! We continue to pray for Allison and will keep checking in!!!
Love, Nancy and Nolan
Nancy and Sam (Nolan Ramsey MPS-1-H www.caringbridge.org/co/nolanramsey)
- Tuesday, June 17, 2003 7:55 PM CDT

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Good Luck for the 4th treatment! A whole month has gone by already and changes are happening. It is such wonderful results!!
Hugs and Kisses to Alli and Ashley. Tell them that I want them to come to Fargo and spend some time with their Nana.
Maybe you and Jim would like a long weekend and I can have both till Sunday then I can take Ashley back to Fargo with me for a week?????
I leave for Mississippi on the 30th of June and return the 6th of July. Think about which weekend would work for you both and I'll come to Bismarck.
Have a good day tomorrow and I'll call tomorrow late afternoon. Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Tuesday, June 17, 2003 3:27 PM CDT

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Hey Jennifer the photos are great! I am so glad to know that Allison is doing well with this new treatment. She is so beautiful and full of life. My thoughts and prayers are with you and your family...Desiree
Desisree Herman <sdherman@peoplepc.com or desiredimage@hotmail.com>
Bismarck, Nd 59504 - Monday, June 16, 2003 11:53 PM CDT

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Great news! It's so wonderful to hear that ERT is working so well with Allison. God Bless! My 11 yr. old son is dx with MPS II, I hope that he will qualify for the phase III clinical trial for ERT which is expected to start in 9-03.
Kris Klenke <kris@mpssociety.org>
Worden, IL - Monday, June 16, 2003 9:02 AM CDT

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Wow, how great is that!!! I can't wait to read all the good things that ERT brings to Allison. What a good girl you are. Love, Anne
Anne Himes <www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, June 13, 2003 6:31 PM CDT

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Hello Jenn!
I thought I would check to see if there was any more news about Alli's progress today. I was so happy to find out that Alli is seeing positive effects from the enzyme replacement already! I wouldn't have dreamt it would work so fast. It's WONDERFUL news. My thoughts and prayers are with you, Alli, and your family. Friends forever. Love, Kara
Kara Johnson <kjohnson@medicine.nodak.edu>
Grand Forks, ND USA - Friday, June 13, 2003 10:52 AM CDT

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Hi Jenn!

I'm so glad she is responding so fast. I knew it was not just in your mind :) Us parents know better than the doctors on how are babies are responding :). I'm so sorry Alli had a hard access time. I wanted to cry for her too! Next week will be easier! Sometimes the ports just move around while tring to access and it makes it hard for the nurses to get it.

I so happy for you and Alli. Keep me updated so I know what to look for :)

Love and Hugs,
Tami Slawson <you know my email :)>
La Verne , CA - Friday, June 13, 2003 8:10 AM CDT

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WOW! A lot can happen in one week!!!!! I am back from Utah and quick had to read the updates on my baby Granddaughter. Alli, I can't wait to see you!! Hugs to Ashley and I will call you all tonight!
Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Thursday, June 12, 2003 1:31 PM CDT

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WOW - - that is SO wonderful.... I'm feeling much better about ERT now. I'm so happy it's working for her. I had no idea it was so quick-acting... Praise God!!!
Shawn Coble (www.caringbridge.org/nc/reesecup) <selboc@aol.com>
Mount Airy, NC - Thursday, June 12, 2003 7:29 AM CDT

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Hi Allison and family, Glad you are having some good days. Just stopping in to invite you to visit Smile Quilts. http://smilequilts.com We would love to make you a virtual on line Smile Quilt all your very own. Just click on the graphic to visit and apply for a Smile Quilt. Praying all goes well for you.

Sprite for Smile Quilts <sprite@tds.net>
Eckert, Colorado USA - Thursday, June 12, 2003 0:18 AM CDT

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I am so glad things are going good. We will continue to check in on you and keep our prayers going. Have a great summer. God bless.
Deb <www.caringbridge.com/mn/ajtoivola>
Minneapolis, MN - Wednesday, June 11, 2003 0:17 AM CDT

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I love your website and the adorable pictures. My daughter Christina was in the first ERT Trial. She passed away in Nov. 02 after developing problems relating to her recent mitral valve replacement surgery. Take care!
Julie Leighton <redfox@san.rr.com>
San Diego, CA USA - Tuesday, June 10, 2003 8:42 PM CDT

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Way to go Allison! I'm so happy to hear that things are working and that she feels better. Jenny, you and your family are always in our hearts. Stay strong and give lots of hugs and kisses to your girls for us!
Kay, Steve, Nora, and Julia
Kay Beckermann <kaybeckermann@hotmail.com>
Fargo, ND USA - Tuesday, June 10, 2003 1:46 PM CDT

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YEAH Allison! I'm so glad to hear that she is responding so well! Jacob will be very happy to hear about Alli's liver geting smaller. That's all he wants from the ERT (can you tell he's 15! LOL:) I can't wait to hear about this weeks treatment! Keep up the good work Alli! (Jenn thanks for your support! I thought I was one who was here to support you LOLOLOLOL)

Love and Hugs
Tami Slawson www.caringbridge.com/ca/slawson
La Verne , CA - Tuesday, June 10, 2003 10:45 AM CDT

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We are so incredibly excited to hear that Alli's belly is getting smaller. The ERT is already working --- yippeeee! Jacob's liver was one of the first things to show shrinkage after his UUCBT (that's normally why our Hurler babies bellys are so big --- enlarged internal organs for those out there that don't know :-)!) and I can remember how excited we were to see the enzyme beginning to infiltrate his system! Take care and Good Luck on Wednesday. Love ~ Melanie, Steve, Jacob, & Matthew
The Irish's <www.caringbridge.org/wa/jacobirish>
Marysville, WA USA - Tuesday, June 10, 2003 1:35 AM CDT

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Hey you! We are thrilled to hear Alli's treatments are going so well and that everyone else is surviving too! I can only imagine the strength Alli is sharing with everyone! We are sorry to have missed you on our trip through ND. It sounds as if you were as busy as us! We sure love to get these updates and pray for you often!
Love, the Cremers
Rachel Cremer <isaac@hotsprgs.net>
Hot Springs, MT US - Monday, June 9, 2003 10:09 PM CDT

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Dear Miss Allison,

My goodness aren't you a stunning little girl. I just love your bunny photo. I bet you are a favourite with all the nurses and doctors with that cheeky smile.

I may be a litte biased considering you look a lot like my own little girl when she was your age. My little girl's name is Daria (pronounced Dah-ree-ah) and she is too is a special little girl with Hurlers. She will be 4 in September. She has a little brother, Caleb, who will be 2 years old in August. He is special because he does not have Hurlers.

We are so happy that you are getting your ERT medicine. It is really exciting. We don't have that medicine in Australia yet. So Daria got her enzyme by using her brother's cord blood as a transplant back in 2001. She is now 620 days post transplant. She is doing really well.

We live on the east coast of Australia in a city called Brisbane. It is very sunny today even though it is winter here.

Hopefully you will come and visit Daria's website when you have some time and aren't running around too much:

http://www.users.bigpond.com/daria99

Love & best wishes from your Aussie friends
Trina, Doug, Daria and Caleb Ward
Trina Ward <daria99@bigpond.com>
Brisbane, QLD Australia - Saturday, June 7, 2003 9:28 PM CDT

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I am so happy to see your updates on Allison's treatment. She will become more and more cooperative as time goes by. God Bless her brave parents and sister too. Grandpa Willis would have been so proud of all of you. Hug each other!!
Elizabeth D.Restemayer <queene@3rivers.net>
Augusta, Mt. U.S.A. - Saturday, June 7, 2003 6:45 PM CDT

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WOW, We had no idea! Thank you for sharing your website. Stay strong and keep your faith. Our thoughts and prayers are with you.
Chad, Jane, McKenzie, Haydn and Lucas Becker <Mckaydas@aol.com>
Andover, MN USA - Friday, June 6, 2003 10:51 PM CDT

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Alli! I loved seeing you yesterday and you are so 2 years old! Up/down, never stopping and talking away like we all understand (and of course we say we do!!) You are a happy girl and so brave. Ashley in her quiet way goes about the house so like a young girl. Good times are ahead Jim and Jenn. Before long everyone will be in sinc with the treatments. Hugs and Kisses! Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Friday, June 6, 2003 8:22 AM CDT

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Way to go Alli! I bet in another month you will not even notice the treatment!!!! I hope Jacob and Sami will be as brave as you ;)

Love and Hugs,
Tami Slawson
La Verne , CA - Thursday, June 5, 2003 3:53 PM CDT

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Wow, Allison... you are so brave! I bet each infusion will get easier. Nothin' beats a little Benadryl at naptime! Hang in there, sweetie. We're thinking of you!
Love,
The Birminghams <www.missmollyb.com>
- Thursday, June 5, 2003 2:17 PM CDT

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Just checking in on cute Alli! Two infusions under her belt! Hope everytime goes as smoothly!
Love, Lisa Post <ltjpost@cox.net>
- Thursday, June 5, 2003 1:28 PM CDT

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Glad to hear that Ali is doing well with her infusions. God Bless!
Kris Klenke <kris@mpssociety.org>
Worden, IL - Thursday, June 5, 2003 7:42 AM CDT

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Alli, you are at the hospital getting ready for your 2nd infusion, you are such a little trooper. Mom and Dad, keep the faith, you have lots of people praying for you. Love you and will call tonight.
Grandma Karen <karenashley1@msn.com>
Grand Forks, ND - Wednesday, June 4, 2003 8:55 AM CDT

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Go Alli!!! I hope your second treatment is great! I'm so proud of you (and your Mom). Keep up the good work!

Love and hugs,
Tami Slawson
- Tuesday, June 3, 2003 10:30 PM CDT

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I will be interested to hear that you and Allison are making good progress.
Mary Beth Noble <mbnoble@polarcomm.com>
Crystal, ND USA - Monday, June 2, 2003 10:53 AM CDT

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Congratulations on the ERT. You are the first family I've come across that is taking advantage of this. I'm at Duke being treated by the PBMT team for a different (unrelated) disorder and have run across many children with MPS and other genetic disorders getting worked up for, going through or who have gone through BMT or CBT. Just wanted to stop and say hi and let you know I will be thinking of and praying for you. I'm excited to learn more about ERT and hope it will help more families. Blessings to you.
Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org>
Lexington, NC, - Sunday, June 1, 2003 10:37 PM CDT

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Your family will be in our prayers each and everyday.
Todd, Aimee, Abbie, and Alex
Cavalier, ND USA - Sunday, June 1, 2003 7:04 PM CDT

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Jenn, Those "new" pictures are GREAT! Poor baby but the love she has will help her through all of this! It's never over but she will have all the support she needs!!!! Think of the books that baby will read!! :-)
Have a great Sunday and I'll be there for breakfast on Weds. morning. I am headed to Medora and will stop to play for the morning hours. See you all then!
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd Cass - Sunday, June 1, 2003 10:44 AM CDT

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Jenn, Jim, Ashley and Allison, We are so glad to hear that Allison is doing so well. We think of your family often and keep you all in our prayers. Give Allison a great big hug from us!! She is such a trooper!!
Kara and Garret Johnson and Elyse (Ellie) too! <kjohnson@medicine.nodak.edu>
Grand Forks, ND USA - Saturday, May 31, 2003 11:19 PM CDT

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Jen,Jim, Ashley and Alli: Just want you to know that we have all the faith that Alli will get better. We have you in our prayers and thoughts.
Chuck and Phyllis Jackson <jackson@polarcomm.com>
Cavalier, ND USA - Saturday, May 31, 2003 10:41 PM CDT

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Your joy spills through in your writing. We are very excited for you. We continue to pray and keep positive thoughts for your journey. God is great.
Deb from the hospital waiting room. <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Friday, May 30, 2003 9:19 PM CDT

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Yeah Alli, congrates on your first infusion!!! We are praying for you!!! Love, The Ramsey's
Nancy and Sam (Nolan Ramsey MPS-1-H www.caringbridge.org/co/nolanramsey)
- Friday, May 30, 2003 6:34 PM CDT

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Good Morning to both girls! Every morning I come here to see Alli's smile. We are are smiling after that first treatment. Have another fun day in the life of a two year old Allison! Thinking of you all, Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, n Cass - Friday, May 30, 2003 7:44 AM CDT

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Dear Jim, Jenn, Ashley and Allison,

My mom (Phyllis Jackson) just told me about little Alli and I went directly to your webpage. I love your webpage, pictures and journal entries! Alli is a beautiful little girl and one can just see her personality radiating through that smile of hers! I know that God is walking with you each and everyday and it is truly a miracle that this enzyme has been approved right when you needed it! I am so happy to hear that her first treatment was a success! Please know that Alli and all of you are in my thoughts and prayers.
Kim Letzring <letzring@sbcglobal.net>
San Diego, CA USA - Thursday, May 29, 2003 10:37 PM CDT

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Alli ~
I'm so excited that everything went well at your first treatment. You were in my thoughts and prayers all day, and I was wondering if your MOM was successful at getting an urine sample.I'm looking forward to playing with you next time.
Madonna
- Thursday, May 29, 2003 1:58 PM CDT

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Yeah!! So glad all went well for your first treatment. Mom, as time goes by, Alli will get used to the clinic setting. Riley doesn't mind going weekly for labs, but starts crying from the time the nurses come in the room until they insert the needle in his arm (no line or port). Then he stops crying and tells them "Thank You!" over and over!! These little Hurlers are so amazing! You too will find that you will not need as much stuff to take to clinic. I used to take a whole back pack...that I think weighed more then Riley (29lbs.) and now we are down to Riley's back pack with a diaper and wipes as we get snacks there. I am sure the first few visits will be a little hectic for all, but all will be okay. You guys are doing a wonderful job! Keep your faith.
xoxoxoxox......Jeanne
Jeanne Joiner <jeannejoiner@hotmail.com caringbridge.org/ok/rileybear>
Del City, OK USA - Thursday, May 29, 2003 9:29 AM CDT

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YEAH Alli! As you can tell everyone was thinking about you! I'm so excited for you! I glad treatment day when so great! Keep up the good work!

Jenn I thought you were going to sleep LOLOLOLOLOLOL

Love and Hugs,

Tami Slawson www.caringbridge/ca/slawson/ <TLSlawson@aol.com>
La Verne, CA - Thursday, May 29, 2003 9:19 AM CDT

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We are SO incredibly excited for Alli!!! I thought about her all afternoon and am thrilled that everything went pretty well. Isn't Benedryl wonderful!?! It was like that the first month or so Jake got it during his transplant (he had ALOT of reactions)...unfortunatly it doesn't have the same affect on him any more. Take care!!!
Love ~ Melanie, Steve, Jake, & Matt
The Irish's <www.caringbridge.org/wa/jacobirish>
Marysville, WA USA - Thursday, May 29, 2003 0:15 AM CDT

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Alli, one hour down and five to go...how very exciting. Thoughts and prayers are coming your direction.
Teri
Nashville, TN - Wednesday, May 28, 2003 1:03 PM CDT

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It's Wednesday, and almost noon... you're probably at the hospital... Dear little Allison... I hope and pray you're doing well and that this treatment works for you!! God bless you little baby girl!!!
Shawn & ^REESE^ (www.caringbridge.org/nc/reesecup)
- Wednesday, May 28, 2003 10:24 AM CDT

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That is wonderful news. It's exciting to see a treatment approved for one of the MPS disorders. I look forward to seeing your updates on the improvements you see. I wish you the best of luck. I found your webpage through the Slawson's. I am the parent of Kraig, an 11 yr. old dx with MPS II.
Kris Klenke <kris@mpssociety.org>
Worden, IL - Wednesday, May 28, 2003 7:47 AM CDT

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Good Morning to Alli and All! My first thought this morning was with Allison and so will be every thought all day long. Jenn, take her hand and guide her though this and keep thinking this is for her long, healthy, life! Every positive thought is screaming your way today. Good luck Jim, Jenn, Ashley and ALLISON!!!
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Wednesday, May 28, 2003 7:45 AM CDT

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Good luck you sweet little girl. I know that these are the answers to all your prayers. We will be tinking of you tomorrow. all our blessings.
Love, lexi, orion, jon, and nicole <nicole54660@msn.com>
tomah, wi - Tuesday, May 27, 2003 11:24 PM CDT

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Many blessings for Alli's first infusion tomorrow! May this be the beginning of a wonderful thing!
Love, Lisa Post <ltjpost@cox.net>
- Tuesday, May 27, 2003 8:50 PM CDT

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YEAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I will be thinking about you and Alli Tomorrow! I'm so very very happy for her! I have heard that the first infusion can go longer but with the pro's there you should be out quick:)

Happy Enzyme DAY! Alli!!!!!

Love and Hugs,
Tami
Tami Slawson <TLSlawson@aol.com>
La Verne , CA - Tuesday, May 27, 2003 5:52 PM CDT

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Allison.........WHAT A PRECIOUS DOLL YOU ARE!!!!!!!!!!!!!! I'll be praying for you every day sweetie!! Also, you will have my special "ANGEL KASSIE" watching over you..making sure everything goes smoothly. Kassie had Hurlers just like you...and I know she put up a brave fight and she is going to help you out now from Heaven's Garden. xoxoxo Allison
Carol Pendleton <dcpendleton@rogers.com / www.kassiescourage.com>
Bowmanville, ONT Canada - Tuesday, May 27, 2003 8:53 AM CDT

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Yeah Alli!

Jenn don't worry. The Genzyme people will work everything out. They are great at working out all the hospital stuff so us parents don't have to stress! I bet she will start on Thursday! Plan on Thursday so you are not upset if it doesn't happend on Wednesday! I'm so happy for Alli!!! This is going to be a great week!!!!!! I will be praying for all of you!
Love and Hugs,

Tami Slawson
- Monday, May 26, 2003 9:25 PM CDT

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Dear Jenn and Jim,
I talked to Angel this morning; the first time since she's moved to MT since I did not have her phone#. She told me about Allison and about your website. I have just read your journal, looked at the photo album and read all the guestbook entries. Thank God that this ERT has become available just in time for Allison to benefit from it. I will be praying for all of you and for success with this treatment. And I will be checking your website often, in fact, I added it to my Favorites. Also, congratulation to Ashley for making it in the choir!
Love,
Aunt Kay
Kay Engels <kayengels@gbronline.com>
Anoka, MN USA - Monday, May 26, 2003 1:54 PM CDT

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Jenn, we are very excited to hear how things go with the first infusion. I pray things go well. We will keep checking in. How excited you must be, hope is a wonderful thing.
Love, The Ramsey's
Nancy Ramsey(Nolan Ramsey) www.caringbridge.org/co/nolanramsey
- Sunday, May 25, 2003 2:03 AM CDT

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Jenn, I see the numbers raising each and every day when I check in to see my granddaughters. You must be so happy so see how many people care and are concerned!! With all of us putting out positive thoughts and prayers together, I can't help but think that we will provide such good results!! Hang in there Babe and let us help. I love you and I pray each day for that beautiful little girl...and I know that I am not alone.
Love, Mom

Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Saturday, May 24, 2003 11:33 PM CDT

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I feel like Allison's life has taken a positive turn. God Bless her. Ashley and Allison will be playing together for a long long time. I think of your family every day and I know Grandpa Will is watching over you all. Love, Angel
Elizabeth D. Restemayer <queene@3rivers.net>
Augusta, Mt. USA - Saturday, May 24, 2003 12:21 AM CDT

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This is great news!! We hope all goes well and We will keep tuning in to this wonderful page to check on Allison's condition through all of her treatments. Best Wishes and keep smiles on your faces ;)
Liz,Chris, and Dan
You know where, ND - Thursday, May 22, 2003 11:07 PM CDT

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I am very pleased to see that the ERT is about to get under way, good luck to all of you its worth the wait from what I here from Dr Peters in Minneapolis and from Dr Wraith from our home country England. We will keep watch on your web site, our thoughts and prayers are with you.

David, Lois & Oliver
David Gosling <thegoose1234@hotmail.com>
Minneapolis, MN USA - Thursday, May 22, 2003 9:42 PM CDT

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Hi,
I think your website is a wonderful idea for everyone involved! It is so informative and moving. Alli is so beautiful (as is her " singer" sister). I'll bet they make beautiful music together....... What a fun way to celebrate life!!
Constance M. Boe <boecon@fargo.k12.nd.us>
Fargo, N.D. U.S.A. - Thursday, May 22, 2003 3:11 PM CDT

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We are thrilled to hear all the good news!!! You're right...what's one more week in the scheme of things!?! I am just so happy this option is available for Allison and look forward to hearing how well she continues to do! Love ~ The Irish's
Melanie, Steve, Jake, & Matt <www.caringbridge.org/wa/jacobirish>
Marysville, WA USA - Thursday, May 22, 2003 1:29 AM CDT

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YEAH!!!!!!!!!!!! I'm so happy you have a start date!!!! ERT is going to do wonders for Alli! I know this in my heart, she will be running, jumping, and playing like any other child! Some day we are going to look back on this and wonder why we were so worried :)

You will be in my thoughts and prayers! Keep me updated! Happy enzyme day Alli!

Love and Hugs,
Tami Slawson www.caringbridge/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Wednesday, May 21, 2003 11:04 AM CDT

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Just stopping by to say hello...I am so happy I got to meet you both. Even tho it was so stressful. I will be praying for all good things. God bless you.
Deb <www.caringbridge.com/mn/ajtoivola>
Mpls., MN - Tuesday, May 20, 2003 11:01 PM CDT

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So glad to hear you have made it home and Allison is doing great! We will be in Fargo for Jared's high school graduation June 1st. I'll give you a call and hope to see you either in Fargo or in Bismark. We sure love all of you. Thanks for keeping us updated!
Love, Rachel, Jake and Isaac Cremer
Rachel Cremer <isaac@hotsprgs.net>
Hot Springs, MT - Tuesday, May 20, 2003 4:58 PM CDT

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JEnn,
Glad to here the surgery went OK and that the new drug is available. THink positive She is such a cutie and is Ashley
My continued thoughts and prayers
Janice
WFHS, ND US - Tuesday, May 20, 2003 11:33 AM CDT

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Hi Jenn

I'm glad your home!! Do you have a start date for ERT? Keep me updated. Jacob and Sami should start in 2weeks. We don't have set date yet but it will be soon! Sill working on the insurance stuff. We need to have a Enzyme party! I talked to Janelle and Noah starts Thursday, YEAH!!!!! I so happy for all our babies!!!! Keep me updated!

Love and Hugs
Tami Slawson <TLSlawson@aol.com>
La Verne , CA - Sunday, May 18, 2003 8:03 AM CDT

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Jenn, this is my first time to your page, I saw a link from Taylor's page and thought I would check it out. I will read your journal history to get updated.
My name is Cathy Peters and my daughter Isobel had hurler's, she became an angel on April 10 due to transplant complications.
I wish you luck and will pray for Allison and your entire family.
Cathy Peters <www.caringbridge.org/canada/isobel>
St.Albert, AB Canada - Saturday, May 17, 2003 11:17 AM CDT

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Grandma Angel is anxiously waiting for news. I am praying everyday for all of you. Keep thinking good thoughts. Maybe Grandpa Willis is watching over Allison too.
Elizabeth D. Restemayer <queene@3rivers.net>
Augusta, Mt USA - Friday, May 16, 2003 11:10 PM CDT

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I'm so glad you are home and all went well. It must have been quite upsetting for Allison to go thru this, but how wonderful the timing couldn't have been better. I have
thought of all of you all week and am so glad it's over. Janelle said she would be getting her first IV next week. Give Allison a hug for me. Love Nana 11

Janice Bowe <JBo811@aol.com>
Diamondhead, Ms Hancock - Friday, May 16, 2003 9:56 PM CDT

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Glad to hear Alli did great. Congrats to Ashley on making the choir!!!
Love, Lisa Post <ltjpost@cox.net>
- Friday, May 16, 2003 4:00 PM CDT

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So glad to hear that all went well with Allison; what a load lifted off your shoulders! Have a safe trip home & give a great big hug to Allison from us! Congrats, Ashley on your big achievement of getting in the children's choir!
So proud of you both, Ashley & Allison! Welcome Home!!!! God Bless You All.....
Natalie Kraft
- Friday, May 16, 2003 1:56 PM CDT

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Jenn, Jim, and Alli: Just wishing you a safe trip back to North Dakota. I'm sure that it feels very good to have this big step over with. Jenn and Jim, I'm with you on knowing how difficult it is to be with your baby when they're having medical interventions. You want to take it all away, wonder if it would be easier if you weren't there, but know there's no possible way you could leave their side. Can't wait to talk to you when you're back and hoping that the test results are OK. Just wanted you to know I'm thinking of you.
Roxane <romanick@bis.midco.net>
Bismarck, ND USA - Friday, May 16, 2003 6:54 AM CDT

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Jenn, so glad to hear Allison is doing so well, tubes are great!! Nolan hears much better now after his were put in. We will be continuing to pray for you.
Love, The Ramsey's
Nancy Ramsey(Nolan Ramsey) www.caringbridge.org/co/nolanramsey <samdramsey@msn.com>
Erie, Co - Thursday, May 15, 2003 11:08 PM CDT

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Hi Jen!!!!!

I sooooooo happy all went well! I have be praying for you all! I knew Allison would do fine! Great Job Alli!

Congratulations Ashley! You are the Queen!!!!!!!

Love and Hugs,
Tami
Tami Slawson
- Thursday, May 15, 2003 11:02 PM CDT

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Alli- Angels were watching over you!! We are so excited that everything went so well. The power of prayer is a wonderful thing. See you guys soon!
The Russell's
Katie Russell <k-russwll@bis.midco.net>
Bismarck, ND Burleigh - Thursday, May 15, 2003 10:59 PM CDT

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Mom from Ashley,
I really miss you and I love you! I'll be waiting to see you and Dad tomorrow. Please drive safely and bring Alli home. I MISS HER!!!
Hugs and Kisses, your daughter Ashley
Ashley Restemayer <jennmarie@bis.midco.net>
Bismarck, ND - Thursday, May 15, 2003 9:19 PM CDT

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Praying all went well with the line placement and ear tubes. It is really good news that Alli tested so well for her age with Hurlers! Sounds like ERT is going to be a great fit for her! I am very excited and hopeful as well for you all! God Bless her!
Love, Lisa Post <ltjpost@cox.net>
- Thursday, May 15, 2003 2:47 PM CDT

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Jim, Jenn and Alli,
My thoughts and prayers are with you today, wish I could be there for support. Am anxious to hear from you. Grandma Bunny also sends her love and prayers.
Love Grandma Karen <karenashley1@man.com>
Grand Forks, ND - Thursday, May 15, 2003 1:10 PM CDT

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You are in our prayers. We sure do miss that smile every day from Alli. She makes the day so much brighter. If there is anything we can do, please let us know. Take care and give Alli a great big hug.
Julie Schwarz
Bismarck, ND USA - Thursday, May 15, 2003 10:19 AM CDT

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Thoughts and prayers are with you this morning. Everything will be fine....these doctors know the disease quit well. I will check on you later. Keep your chin up and it is okay to cry, we are mommies and daddies with precious little babies.
xoxoxox......Jeanne
Jeanne Joiner <jeannejoiner@hotmail.com caringbridge.org/ok/rileybear>
Del City, OK USA - Thursday, May 15, 2003 8:27 AM CDT

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We're thinking about you guys and praying extra hard for Alli during her surgery tomorrow morning. Take care and you know if you need someone to talk to you can always call me!!! Love ~ Mel, Steve, Jake, & Matt
The Irish's <www.caringbridge.org/wa/jacobirish>
Marysville, WA USA - Thursday, May 15, 2003 1:15 AM CDT

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Dear Jenn and Jim,
Sounds like Allison had a long day of testing. We knew she was doing great developmentally for her age--but I'm sure it's comforting to hear that from the doctors, too. Allison is such a sweet, beautiful little girl and she blessed to have such wonderful, loving parents. Jenn, you have always been there for me through everything, and I want you to know I'm always here for you, if there's anything at all I can do to help make things a little easier--just say the word. For now, we are praying for all to go smoothly so Alli can get back home, start her treatments, and get on with the business of being a two-year-old...keeping her parents running! We love you! Thank you for keeping all of us up to date on how it's going!
Becky O'Meara and family <omeara@i29.net>
Moorhead, MN USA - Wednesday, May 14, 2003 11:18 PM CDT

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Jen, You might remember me from high school. Jessica (Olson) March forwarded this info to me. I will be praying for you, Jim, Ashley, and Allison that you have a safe and successful trip. God bless you all.
Carolyn (Wagner) Hamil <bchamil@peoplepc.com>
West Des Moines, IA USA - Wednesday, May 14, 2003 3:32 PM CDT

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Dear Jim, Jenn and girls,
Our prayers are with you that all goes well for Allison, and that your are comforted by the excellent care she is receiving. One of the hardest things in life is to see your children hurting. We live close by for your Minneapolis trips, so PLEASE feel free to call us anytime, 763-535-0759.
Karen & Duane Luessenheide <kel19@juno.com>
New Hope, MN USA - Wednesday, May 14, 2003 9:49 AM CDT

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I can tell by all the entries in this guestbook that Allison has a lot of people praying for her. We are all hopeful that her treatments go well. As one of the first children to receive this new treatment, many eyes will be on her. Best of luck to Allison and her whole family. You are all in our thoughts and our prayers.
Gretchen Luessenheide (Ingrid's sister) <gluessenheide@lindquist.com>
New Hope, MN USA - Wednesday, May 14, 2003 9:41 AM CDT

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Hi Jenn! I will update you ASAP when I get home! If you want me to ask anything in SF, Email me! I will keep you in my prayers this week! Give the babies hugs!

Love and Hugs,
Tami
The Slawsons <TLSlawson@aol.com>
- Tuesday, May 13, 2003 9:33 PM CDT

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Hi Jenn -
Kyle forwarded me your email. Best wishes and prayers to you and Allison, this is an awesome opportunity for your daughter! Thanks for putting this website together! Hope you have a safe trip and everything goes well!
Jessica (Olson) March <jessica673@hotmail.com>
Denver, CO USA - Tuesday, May 13, 2003 10:14 AM CDT

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Praying for you while your in Fairview--hope all goes well!
God Bless You ALL--we will be thinking of you everyway & wishing you well!!!! Need us--just call Love Natalie
Natalie & Family
Bismarck, ND - Tuesday, May 13, 2003 8:26 AM CDT

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Jenn and family - I just opened this email to find the address. This sounds like wonderful news. Jenn you have always been an extremely positive part of my life. Whether it was in school or church whatever, if the one thing I can do for you is continue to pray for your beautiful child I can definitely do that. I wish you all the best and Allison too. May God Bless you and watch over you forever. I will send this on to some others. This is a wonderful site, I will keep it and look at it often. I was planning to be in Bismarck Memorial Weekend the 23 and 24, but if you are not around I will totally understand. Please if you ever need anything don't hesitate to ask, I owe you a lot, whatever or whenever I will be there. Miss you and Love you lots, Take care and God bless, Kyle
Kyle R. Knutson <kyleknutson@msn.com>
Loveland, CO USA - Monday, May 12, 2003 11:49 PM CDT

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I am packing my bag and heading to Bismarck! I am so excited and scared all at the same time. Here's to the BEST Alli and I will have a huge hug and kiss for you when you get back home!
I will be there about 10:00 tomorrow Jenn so I can play with Alli before you leave. May the angels bring you through all this with all the smiles possible!!
Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND Cass - Monday, May 12, 2003 3:38 PM CDT

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Just a quick note to say I will keep you in my prayers this week! Keep us updated! Big hugs to Alli and Ashley (and YOU)!

Love and Hugs,
Tami
Tami Slawson <www.mpsrun.com caringbridge/ca/slawson>
La Verne, CA - Monday, May 12, 2003 2:19 PM CDT

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Ally~
My BLESSINGS are with you, as you adventure into your first phase of treatment.

LOVE ~ Madonna
- Monday, May 12, 2003 11:25 AM CDT

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HI, Allison!
What a big week for you! We'll be thinking of you and hoping all goes well with surgery and the testing this week.
Love,
The Birminghams <www.missmollyb.com>
- Sunday, May 11, 2003 8:31 PM CDT

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Hi, I am another Hurler Mom and am thrilled for your family and all of us affected by Hurlers that we can watch the progress of your beautiful little girl and all that ERT has to offer. Our son Elliot had a very succesful transplant in Mn, but I am glad there is now something other then BMT for these kiddos. Will be checking in on you often.
Kristin L Mattheson <www.caringbridge.com/nh/elliot>
Jaffrey, NH - Sunday, May 11, 2003 5:10 PM CDT

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Hi
Babies, Before I go to bed tonight, I had to take another look at the girls. They look so happy! Happy Mother's Day Jenn. Your kids are so lucky to have a mom like you.
I love you.
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, nd cass - Saturday, May 10, 2003 10:50 PM CDT

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Hi Jenn!

I will be praying for you this week. I know everything will be fine. Allison will take it all is stride! Your nerves will be shot :)

Keep up the good work Allison!
Love and Hugs,
Tami
Tami Slawson www.mpsrun.com <TLSlawson@aol.com>
- Saturday, May 10, 2003 12:11 AM CDT

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I was so glad to hear the news of the treatment for Allison, and I will keep her in my prayers every day. The timing was so perfect for Allison, I'm sure it will work. My thoughts are with all of you and love you very much.

Nana the second
Janice Bowe <JBo811@aol.com>
Diamondhead, Ms Hancock - Saturday, May 10, 2003 10:58 AM CDT

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I wanted to let you know I am thinking about you guys all the time and will pray for you.
Love, Matt
Matt Myrold <mattawsome@aol.com>
Moorhead, MN USA - Saturday, May 10, 2003 8:59 AM CDT

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Hey Jenn, Jim, Ashley and Allison,
The girls look so beautiful and happy in the pictures. I think the web site is great and informative. You guys are in our prayers here in Montana. We sure love you all and pray your trip to the cities will go well.
Love, Rachel, Jake and Isaac Cremer
Rachel Cremer <isaac@hotsprgs.net>
Hot Springs, MT USA - Friday, May 9, 2003 2:38 PM CDT

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Hi Jenn,

I'm always checking on you! Give Allison a big hug from me! Soon all our MPS1 babies will have the meds and will be running and jumping and playing! YEAH!

Hugs,
Tami
Tami Slawson <TLSlawson@aol.com>
- Friday, May 9, 2003 2:23 PM CDT

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I love you Baby Doll...A huge hug and kiss for Ashley. I'm filled with such hope, Jenn and Jim. On this Mother's Day weekend, I send you all my Mother hopes and prayers!

Love, Mom
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND Cass - Friday, May 9, 2003 6:27 AM CDT

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This sweet baby is the grandchild of my husband who passed away March 13,2003. He died without ever seeing her precious smile. God Bless you Allison, and God bless your wonderful family.
Elizabeth D. Restemayer <queene@3rivers.net>
Augusta, Mt USA - Thursday, May 8, 2003 6:31 PM CDT

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Hi, Madonna told me about your website so I had to visit.
Those are some very cute pictures. Let me know how the plans are going.
Lisa
Lisa D <87durl@state.nd.us>
Bismarck, , ND usa - Thursday, May 8, 2003 6:28 PM CDT

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I just found your site on Taylor's. I, too, am a Hurler mom - only my Hurler baby is now an angel. He was transplanted at Duke on Dec 5 last year and passed away March 10. ERT was not approved at the time we were seeking treatment for Reese so BMT was the only option as far as we were concerned. I hate to hear about another child being diagnosed with this disorder but I'm glad it was caught in time so treatment can help. I pray for the best for little Allison (she's a DOLL by the way). I'm adding you to my favorites and will check on you daily. I'll let my little Reese know he has another child to watch over.
Shawn & ^REESE^ <selboc@aol.com>
Mount Airy, NC www.caringbridge.org/nc/reesecup - Thursday, May 8, 2003 11:01 AM CDT

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Jenn, Just read about your website on Jacob's site, I am another MPS I mom, my son Nolan is going through transplant at Duke, we actually get out of the hospital tomorrow and move to the apartment to start clinic visits. I hope everything goes well with Allison. I will check in on ya'll often. Please feel free to contact me anytime.
Love, The Ramsey's
Nancy Ramsey(Nolan Ramsey #5213) www.caringbridge.org/co/nolanramsey <samdramsey@msn.com>
Erie, Co - Wednesday, May 7, 2003 8:25 PM CDT

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Dear Allison and family,
I got your site from Jacob Irish's site and I am thrilled to meet you! I have contact with alot of MPS families, in particular Hurler's ever since my good friend's little girl was diagnosed. I just wanted you to know that I will add Allison to my prayer list and I am excited to follow her progress with ERT. It is an exciting development for Hurler families. Allison is just adorable and I look forward to checking back on her often!

Lisa Post <ltjpost@cox.net>
South Windsor , CT - Wednesday, May 7, 2003 5:39 PM CDT

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Hi, I love the picture of Alli with the bunny. She looks so cute!
Pam Van Beek <pamandarlyn@msn.com>
Mandan, ND USA - Wednesday, May 7, 2003 12:18 AM CDT

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Allison ~ My little buddy
I love your pictures ~ your mommy did a great job putting it all together. I will be praying and thinking of you everyday plus I will be at your side to "play" with you~
Madonna
- Wednesday, May 7, 2003 11:19 AM CDT

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Allison & Family...the pictures of the girls are BEAUTIFUL!!! I too am in this HURLER world....my daughter Kassidy was born June 20, 2000 and diagnosed at age 8 months. Kassie had her bone marrow transplant on October 4, 2001, but very sadly passed away due to complications September 1, 2002. I will pray that Allison comes through with her enzyme replacement therapy with flying colours!!!! I will visit your page everyday to follow her progress. You can visit Kassie's website if you like at www.kassiescourage.com God Bless
Carol Pendleton <dcpendleton@rogers.com / www.kassiescourage.com>
Bowmanville, ON Canada - Wednesday, May 7, 2003 8:19 AM CDT

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Good Morning Alli! I look at you every morning with your smiles and that cute twinkle in your eyes. You are on my computer screen with Ashley and I "check" you both out everyday! Have a great day!!
Love, Nana
Janelle Schumacher <shoe1115@yahoo.com>
Fargo, ND Cass - Wednesday, May 7, 2003 5:33 AM CDT

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Hi, Allison!
You are such a beauty! So glad you've got a website set up- we'll keep checking in on you to see how things are going.
Much love and prayers for you all,
Jenny, John, TJ and Molly Birmingham (MPS1) <www.missmollyb.com>
Arlington Heights, IL USA - Tuesday, May 6, 2003 9:46 PM CDT

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What a wonderful web page. You are handling this just wonderfully! Our prayers are still with you and your family. Much love!

Lois and Family
Lois <lmauch@cableone.net>
West Fargo, ND USA - Tuesday, May 6, 2003 7:20 AM CDT

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Hello to Allison and her family: We are another Hurler family in Canada. Our daughter Sarah was diagnosed in January 2002, and had her bone marrow transplant on June 13, 2003. I just wanted to let you know that she is doing great and there is light at the end of the tunnel for these children. Check out our website if you like! Good luck with the enzyme replacement therapy - all Hurler families are thrilled at this new option. http://members.rogers.com/sarahspage

Judy Byrne <byrnet@rogers.com>
Guelph, On Canada - Monday, May 5, 2003 9:08 PM CDT

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Hi Jenn~

Found Allison's site from Jacob Irish's and just couldn't leave without mentioning the beautiful pictures...what pretty girls, what pretty smiles!

Also, I was born and raised in Rugby...you just never know where you will find a ND connection:)

I'll check in often to see how Allison is progressing with the new drug. My thoughts and prayers are with you and your family.
Teri <tex612aol.com>
Nashville, TN - Monday, May 5, 2003 12:58 AM CDT

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Your page is wonderful, what an amazing job you did explain to others about MPSI. I hope the surgery is soon and I think you will be pleased with Fairview. Riley will return June 8 for a week long one year anniversary test to his Stem Cell Transplant for Hurlers. Maybe we will see you there if you have it around that time. Allison is such a cutie, got to love those rabbit Easter Pictures!!
xoxoxoxo......Jeanne
Jeanne Joiner <jeannejoiner@hotmail.com caringbridge.org/ok/rileybear>
Del City, OK USA - Monday, May 5, 2003 10:25 AM CDT

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Dear Jenn,
I am very sorry that you and your family are having to go through this. But I am very happy to get to "meet" you and I was very excited to read about Allison on Jacob Irish's web page since you are the first family I know of to receive the enzyme replacement therapy!!! We will be following your progress and hope for the very best. Please feel free to check in on us. Love, Anne
Anne Himes <www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Sunday, May 4, 2003 8:21 PM CDT

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Hello Allison and Family. My name is Trisha Athy and I have a 18 month old boy with Hurlers Syndrome, his name is Aaron. Aaron had a cord blood transplant on Feb 6th, 2003 and is doing pretty well so far. I hope that everything goes great for you all. I will keep you in my heart and in my prayers. Please feel free to visit Aaron's site at caringbridge.org/il/aaronathy if you have any questions or want to talk please e-mail me and I will try to assist the best I can. Take care!!!
Trisha Athy <caringbridge.org/il/aaronathy>
Belleville , IL USA - Sunday, May 4, 2003 4:48 PM CDT

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Hello Jennifer....Your mother send me the web page you created for Allison May. You did a wonderful job and I now understand this genetic disorder better than before.

What a beautiful picture of Alli..... you and Jim are wonderful parents and my hopes and prayers are with you and your daughters, today and always. God bless you!
Uncle Jeff <JB1613@aol.com>
West Chicago, IL USA - Sunday, May 4, 2003 3:31 PM CDT

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Hi Jennifer & Family!

I am so happy you decided to put together a website for Allison. I'm so excited to follow her wonderful progress with Aldurazyme --- she's going to do great! We're thinking of you all of the time and praying that everything goes smoothly for Allison!

Love ~ Melanie, Steve, Jacob (www.caringbridge.org/wa/jacobirish), and Matthew
The Irish's <mairish@hotmail.com -OR- www.caringbridge.org/wa/jacobirish>
Marysville, WA USA - Friday, May 2, 2003 11:10 AM CDT

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Jennifer, What a beautiful baby and God bless you and your family. You are in my thoughts and prayers.
Janice Miller
- Friday, May 2, 2003 10:27 AM CDT

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