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Saturday, July 21, 2007 2:06 PM CDT
Hi eveyone that stops bye kyle page it has beening a long time that i have updated his page. Will i am working 2 shift now it is going on 2 months now it is going ok it is a job. Will that is all that is going on with me right now. next month will be 2 year that i last my sweet boy he is well took care of my dad is with kyle that make me feel better knowing he is with his grandfather that he loves so
i last my grandmother in june she was 86 and my mom had a heart attack on june 21th and she was in the hosptal for 2 weeks and now she is back home and we have beening take care of her. the doctor said that she will br ok but it will take a long time to get back to he old self but we are working on that everyday will take care and thank you all who stop bye this page
Wednesday, May 2, 2007 8:25 PM CDT
Hello to everyone that stops byr kyle's page sorry it has beening so long that updated his page i have beening having a hard time this past few months. But i am helping out at school and it is going great i thank.
I miss kyle every day and i know i will keep doing it for years and years.
It will be 2 years in Aug that kyle passed away.
And 1 year that kyle's best friend passed away April 25th
will that is all i get to say at this time.
May god bless you all
Saturday, January 6, 2007 8:12 PM CST
Hi,
Everyone that stops bye to check on how i am doing. I did ok the x-mas it was a hard one with out kyle. But i get you on X-mas moning and what over to kyle's grave for a few mins and it want ok. me and my family want over to kyle;s grave on x-mas eve night it want ok we said a little pray and after that we all want to my mom house and had a good night. It has beening over a year that my sweet boy passed away that is hard to belive.
Will take care and hope you like the prticres i put up on kyle's site.
Sunday, October 15, 2006 4:59 PM CDT
Sorry it has beeing few weeks that i have not updated kyle's page. Will i am haveing a hard time around here this days. But if someone has loss a child know what i am talking about now that christmas is coming up in 2 months. Kyle loved this time of the year. I can only take one day at a time that is what get me throght the hard time with out kyle. And i am having a very hard time finding work around here too. The place that is was working at for a few months after kyle passed away is no longer working people so i have beening out of work for over 2 months now. So that is how my live is going right now. Thank god that i have some good friends and my family is here for me. I know every place i go looks at my like i a crazy because i have not worked in over 12 years. I thank that has alot to do with me not find a job. But i keep telling them that i had to take care of a child who needs 12/7 care. But people around does not care at all about that.
Oh will please keep praying for me that one day i will get a job soon because you cannot live with out money in this live time so i donot know now long i will keep kyle's page up and running because i met have to cut my AOL out one day
i hope not but we have will have to wait and see.
take care and thanks to everyone that keep sending me cards and things in mail may god bless everyone
Saturday, September 30, 2006 6:54 AM CDT
Sorry that is has beening so long for a update about things that are going on around here for me. I miss kyle everyday but i do get bye but some days i set and thank about the funny things that kyle done why he was alive and why he was growning up. When dose the time go it is going on October it has beening over a year now that kyle passed away. This time of the year is going to be so hard for me because this are the holday that kyle loved the most gifts and food i loved seeing the smile on his face on christmas moning i know it will take a long time for me to not fell this why but it could be years down the road for me. My family is going throgh alot of hard times around here will it will be ok one day will i hope so. We will have to wait and see right on will that is what is going on with me this days one thing will everyone please pray for me i need it this time of the year.
May god bless everyone take care hugs
Wednesday, August 23, 2006 10:39 PM CDT
Hello this is Crystal Kyle's Mom. Today is kyle's 17th b-day he will have beening 17 at 11:44 tonight. We want over to kyle's grave today for his b-day we all song Happy B-day to him and said a few prays and cryed a little to be is was very nice have all of my family with me today. I know that kyle was looking down on ous and LOL. He was having a b-day party with his paw-paw that he loves so much. I took some prictures and i will put them up soon as i can. We let 17 balloons go for kyle too. I will get throw this month one day at a time. Because kyle passed away on Aug 7th and his b-day was today Aug 23th. Please keep praying for me.
Take care
hugs
Tuesday, August 8, 2006 4:01 PM CDT
Hello this is Crystal. I has beening very hard around here this week. On Monday it was 1 year that kyle passed away. My family and i want over to kyle grave today we put some flowers and and we made some music and we all cryed a little be it want very will. I have a pricture up on kyle's pricture of what we put up for kyle. I know it was raining before we want over to kyle's grave when we get thier it stopped raining and after we do this things we had planed it stated to rain again. I let some balloon's go for kyle on Monday Aug 7 th 2006.
May god bless everyone.
Friday, July 14, 2006 8:39 AM CDT
hello this is Crystal Kyle's mom i was going to tell you guys that the Memoral Service was great this was the 1 year that the people had a Pediatric Memorial Service for the kids that are no longer here with their family and friends.
A lot of people come to the Service on July 9th 2006.It was so sweet of them to passes out flowers in Honor of the children that has passed away. It was a hard day for me but i get throw it my Mother and Aunt want with me so it was ok had someone to cry with. I Meet lady and her daughter at the Service that last thire brother and son on Aut 13 2005 a few days after kyle passed away he had the some thing kyle did when he passed in on Aug 7th 2005.
I hope to here from her one day.
Here was a porm that a lady read at the Service.
My grief is like a river
I have to let it flow,
But I myself derermine
Just where the banks will go.
Some days the current takes me
In waves of guilt and pain,
but there are aways quiet pools
Where I can rest again
I crash on rocks of anger
My faith seems faint indeed,
But there are other swimmers
Who know that what I need
Are loving hands to hold me
When the waters are too swift,
And someone kind to listen
When I just seem to drift.
Grif's river is a process
Of relinqishing the past
By swimming in hope's channels
I'll reach the shore at last.
Yes i was going to tell all who come's in and read's about what is going on with me and angel kyle.
The ladys at the www.bridgeofdreams.org
are asking if everyone could relese a balloon on Aug 7th 2006 because that was when kyle passed away it would be one year with out kyle. If you can do that go to the site and tell. Deddie that you would do this for kyle.
She is asking if you could take some pricture when you release them.
And the site has a Memory Book that you can sign too.
Sunday, July 9, 2006 4:18 AM CDT
It will One year Aug 7 that kyle passed away it is still like it was only a day ago. I know the school he want to give me a year book for kyle. One of his best friends make a page in the yearbook about kyle live it was sweet of her to do it i want to the school and the kids give it to me i cryed like a baby and i had all the people crying like baby's too.
On July 9th 2006
I am going to a Memorial Service that Child Life is have for family who has last their children that is the Hopstal that kyle want to when he was sick and that the one that kyle passed away at it is in Charlotte NC
I will take some pricture and put them up on the page will i hope so if i am not crying to much to take them.
Sorry it has beening so long for a update it is going ok here i miss kyle alot some days. thank god i have my family and friends to help me get throw the hard days. I know July 4 was a hard day for me becasue kyle loved this time of year becasue i took him to the store to pay some fireworks he loved have alot of them i know Me and My Mom would save our money so we could get some fireworks. I get a few fireworks this year for kyle i know he saw them from heaven because he is looking down on me everyday he is my sweet Angel.
Will take care and please keep praying for me i need it.
Tuesday, June 27, 2006 6:53 AM CDT
Hello this is Crystal Kyle's Mom. I hope that evey one is doing ok. And thank you for coming in and checking up on my. I Know Mother's Day was a hard day for me but i get throw it. I want over to kyle's grave for a few hour. And i get throw that day ok. I want out to eat with my mother and Anut it want ok. It is going on a year now it will n=be 1 year Aug 7th 2006. It is hard to thank it has beening that long but it has.
Wednesday, May 10, 2006 9:00 PM CDT
HELLO THIS IS CRYSTAL. KYLE'S MOM IT IS GOING TO BE A HARD MOTHER'S DAY FOR ME ON SUNDAY BUT I WILL GO OVER AND SET WITH KYLE FOR A FEW HOUR I THANK THAT WILL MAKE ME FEEL A LITTLE BETTER KNOW I AM WITH HIM. JASON AND KYLE ARE RUNING AND PLAYING AND LOOKING FOR GIRL THAT WAS WANT THE BOYS TALKED ABOUT ALL THE TIME. I WANT AND TALKED TO SOME OF MY OLD FRIENDS ON THE MDA CHAT LAST NIGHT AND IT WAS A GREAT TIME FOR ME KNOWING PEOPLE STALL ARE HERE FOR ME AFATER KYLE PASSED AWAY THE LADY'S ARE GREAT TO TALK WITH AND I HAVE MISSED THEM ALOT BUT I SAID I WAS GOING TO STOP BYE THE CHAT ROOM FOR A MIN AND I TALKED FOR OVER 1 HOUR TO THEM. I HOPE TO KEEP THIS SITE UP AND RUNNING FOR MY SWEET BOY KYLE BECASUE ALPT OF PEOPLE CARED ALOT ABOUT HIM AND HE HAD A GREAT HEART AND HE IS MISSED ALOT I AM STILL GOING TO THE CHRUCH MEEINGS FOR THE KIDS LIKE KYLE I KNOW HE WOULD WANT TO TO KEEP MY HEAD UP AND KEEP GOING.
WILL TAKE CARE AND MAY GOD BLESS ALL THE PEOPLE THAT STILL COMES IN AND CHECKING UP ON ME AND KYLE
Tuesday, May 2, 2006 7:51 PM CDT
Hello this is Crystal. Kyle's mother will it is going ok this days. Last week was a hard week for me and good friend of kyle's passed away last Tuesday but i make it throw it ok. We know jason for a long time he was like a son too me. Will kyle has his best frind with him now both of he boys are playing a running and talking about becasue it was 8 months of not talking alot to talk about. Jason and kyle likes the girls that would be the 1 thing jason would have talked about. Will i am back to work full time and that is going ok i have meet and new friend at work and she has 3 small kids and 10 year old and a 5 year old and a baby who will be 1 will this momth it is May when did the time go. A
And thank you all who paryed for Jason and his family. take care hugs.
Tuesday, April 25, 2006 7:08 AM CDT
Hello this is Crystal i have get some bad news this morning one of kyle's best friends passed away around 5:30am and i am asking for all of you who comes in and checks up on the updates about kyle and me to please please pary for Jason's family he was a sweet young man he was 23 years old and i he was like a son to me. Jason was in a wheelchair too and now the boys are runing and playing and having a great time. It was so hard on Jason after kyle passed away he was very close to kyle. And Jason gradfather passed away last week and now Jason this week will the guys are toghter for every now.
Please pary for the family his Mom needs it alot now
May god bless you all.
Sunday, April 16, 2006 6:52 PM CDT
Hello this is kyle's MOM (Crystal. Not to much going on around here this days only missing kyle alot. Will i am feeling better thank god for that. The doctor give me a meds to take and the meds made for stay sick all the time so i stoped taking it and now i and feeeling alot better i and going to start working more hours. I am happy for that because i need the money.
I am a garden for kyle again this year it looks good if i have to say so i did a great job i will put a pricture of it on his page so that you all can see it.
I get kyle a new angel for Easter it is on his headstore.
I have done something for me. I want back to school and i get my High School Diploma and i am so happy for myself and Friday was my B-day and it want ok i didnot cry at all that good for me. MY mom had me a little b-day party that make me cry a little.
I hope that you all keep praying for me to get throw all the hard time right now in my life with kyle and my health
Saturday, March 18, 2006 7:28 PM CST
Hello, this is Crystal Kyle's mom here i was updating a little bet. Will it is 7 months now with out my sweet boy. I know it is ok now. But it is so hard with out him sometime but i will get throw this one day. I know kyle is so happy with out his wheelchair because he he is running and walking and play football and all the things he could not do here on earth. He is with his gradfather and that is a good thing becasue my daddy will take care of kyle.
To one day when i can take care of my sweet boy again. Because he loved his grandfather so much kyle so sad and kyle was so sick for a 1year or so.
I have benning have a hard time with my health now i was working full-time now i about working paert-time becasue of my heath i was doing ok for a few months after kyle passed away. Now i aming having a hard time sleeping at night and i am upset all the time and all the things i didnot want to thank about it all coming up now the night he passed away. I was here at home it was only me and kyle that night i set and cryed and cryed to i could not cry no more. So please keep me in your pary's. I have beening sick for over a month
Will take care hugs
Sunday, February 26, 2006 2:05 PM CST
Hello is has beeing over 6 months. The date that kyle passed away on Aug 7th 2005. Will i have beening doing ok this days. I was working full-time and now i had to drop down the part- part i have beeing have alot of health problems after kyle passed away with everthing going now with now with kyle passing away and family problems. But i will be ok because god is on my side and that is the beat thing you could ask for he will he my throw all the hard time and get me back up and feeling better soon. I had the flu for 2 weeks and that was a bad time for me in the house all the time do alot of thanking that was not a good thing because i was missing kyle alot then. I wish i could get out of this house forever because it makes me feel bad when i am in the house for a long time like when i was sick. Oh will i hope to get out one day but i have to get a great job to do that. But god will help me when i need it.
Kyle's dogs Max and Lady are going ok now for a few months after kyle passed away the poor babys would not eat i know the babys missed kyle alot Max Was only 7 weeks old when kyle's dad get him for kyle. And thanks for all the nice people who keep signing kyle's guest book and for keeping me in throgh parys.
Please keep praying for me.
Friday, January 27, 2006 10:13 PM CST
Hello this is Crystal Thank you for all the nice cards that you guys haas sent me over the past few months and for parying for me over x-mas and the New Year. And it is 5 months that me sweet kyle passed away and i miss him so much every day. I am going to put some new flowers up on Sat. and i have him a new flag too. I will take some prictures of them so i can put them up on his site so you guys can see them. Will i have beening ok and i have want to work with me mom and it is going great it is keeping me busy that is a good thing. But i still have some down days but one thing i have kyle's dog's Max and Lady to keep me busy too.
Will take care love
Crystal
Crystal Brown
P.O Box 1782
Denver NC 28037
Friday, January 27, 2006 10:13 PM CST
Hello this is Crystal Thank you for all the nice cards that you guys haas sent me over the past few months and for parying for me over x-mas and the New Year. And it is 5 months that me sweet kyle passed away and i miss him so much every day. I am going to put some new flowers up on Sat. and i have him a new flag too. I will take some prictures of them so i can put them up on his site so you guys can see them. Will i have beening ok and i have want to work with me mom and it is going great it is keeping me busy that is a good thing. But i still have some down days but one thing i have kyle's dog's Max and Lady to keep me busy too.
Will take care love
Crystal
Crystal Brown
P.O Box 1782
Denver NC 28037
Thursday, December 29, 2005 6:09 PM CST
Hello this is Mother Crystal,
I was very hard around here without kyle with me but i will throw it will i hope so. I was with family and friends for x-mas and we did alot of nice things for x-mas and we all want over to the chruch on x-mas elf and put kyle up some flowers that my brother give to kyle and my father we had a little x-mas with both kyle and daddy. My daddy passed away in 2000 from cancer and kyle in 2005 from Duchenne MD. I know that alot of people was praying for me and thank you for doing this for me it makes me feel a little better some days but i have beening down alot but one day i will be back up and doing what i can for all of kyle's friends that have beening sick for a long time. One of kyle's best friend is haveing suy soon and will you please keep him in your prays. Abd thank to the people at the
The Guardian Angel Program i have get some very nice cards and Angel from them. Will take care and i will keep this site up and running at long at the people will let me keep it.
Crystal Brown
P.O Box 1782
Denver NC 28037
Monday, December 12, 2005 9:39 PM CST
This is Crystal kyle's mom. It is getting very hard around now only 12 days to christmas i didnot put a tree this year was not into christmas this year with out kyle beening here with me. Kyle loved christmas because he put up christmas lights outside on the house and a big tree in the living room. I put up a tree up for kyle this weekend and i have take some pricture's of it.
Will i need to run take care hugs and may god bless you and your family.
Crystal Brown
P.O Box 1782
Denver NC 28037
Sunday, November 20, 2005 11:59 AM CST
Hello i see this page is back up and runing thank god for that. It is very hard around here now that thanksgiving and
Chirstmas is coming up. But i know that kyle will have a great X-mas with god this year and with his granfather that passed away 5 years ago with skin cancer that is a bad word too. But One day i will see kyle and my dad one day. I know kyle still gets some cards in mail telling me that kyle is very much missed all the time. And his friends at school and at church miss him alot.
Can i ask you guys if you can send me some cards because i have beening down for a few weeks now can you please please help me out i know you guys can.
Crystal Brown
P.O Box 1782
Denver NC 28037
May god bless you all.
Tuesday, September 20, 2005 11:06 PM CDT
Hello,
This is mom here i am going to update a little about the football game on friday night. I want very nice and alot of people had pricture's of kyle. The school make 600 pricture's of kyle and give every one at the football game one to have. That was very nice of the the kids to have done this for kyle. Kyle had alot of friends and people who cared a lot about him. And he will be missed alot. But kyle was with as at the game i know because he loved going to all of the game will all of the home game. A few away but not to much.
Kyle has get over 2000 cards in mail i know he will be very happy about all of cards that nice people all over the county has sent to him over the past few year's. And all the little gifts too. I know he is beening take care of now and i will see him again.
Keep praying for me and his family because we all need it very much now.
May god bless you all who has come on a keep up with kyle all the month's when he was not feeling good and when he was in the hosptail.
Wednesday, September 7, 2005 7:39 PM CDT
Hello
I was going to tell you that the school was going to make a page for kyle this year in the year book and the kids in his class last year was going plant a dogwood tree for kyle in the grade that the kids make for all the kids who last their life's. I thank this was so sweet of them to do this for kyle a good friend of his is going to take some of kyle's pricture to them to look at and see witch one's to put in the year book. And on Sep 16 is home ccoming night and the teachers said that something will be done for kyle that night too i will take some pricture so i can put them put on kyle's site.
I know kyle was wishing for over 1000 cards and he has get over 2000 now and still coming in every day.
Take care and may god bless every one
Monday, September 5, 2005 3:03 PM CDT
HELLO THIS IS MOM HERE I WAS GOING TO TELL ALL OF YOU GUYS THAT HAS SENT KYLE GET WELL AND ALL KINDS OF CARDS KYLE HAS GET OVER 1800 NOW HE WOULD HAVE BEENING SO HAPPY TO SEE ALL OF THIS CARDS AND FOR HIS WISH TO COME TURE. i KNOW I WAS TALING WITH THE TEACHER THAT KYLE HAD LAST YEAR SHE SAID THAT THE SCHOOL IS GOING TO HAVE SOMETHING ABOUT KYLE ON HOMECOMING NIGHT AT THE FOOTBALL GAME FOR KYLE. i WILL TAKE SOME PRICTURE OF IT FOR ALL OF YOU CAN SEE TOO. AND KYLE IS MISSED ALOT FROM HIS FAMILY AND FRIENDS TOO.
MAY GOD BLESS YOU AND PLEASE COME BACK WHEN YOU HAVE TIME I KNOW KYLE WOULD LOVE THAT ALOT.
Sunday, August 28, 2005 2:03 PM CDT
Hello thank you for stopping bye and reading about kyle he was a sweet young man he will be missed alot and i have some bad days and alot of good days. I thank about kyle all the time and alot of good memories of kyle when he was a bady the 1 time he walked and talked he 1 words was daddy he called every one daddy for a long time. to he 1 dog to his for baby cat he was looking at it and then put his foot on it and said that it bet him. And he 1 b-day when he put his face in his cake. To the 1 day of school that was a funny day he said that he was not going back because the techaer said he had to take a nap. It was alot of good time. Time that i will not forget. Kyle was a sweet people and loved every one. Kyle was so sick the last few days we had him here on earth he he would asked people to please take care of his mommy he was all ways take care of me all the time. He is my angel loveing over me all the time now. We get his heartstone up on Aug 26th 2005 . and it is so beautiful it will have his pricture on it in a few weeks and has a pricture of max on it too.
I know alot of people come bye the church on kyle's birthday and we released 16 ballon's and has 16 candle's too. I know kyle saw them all and he would have loved them alot.
I know kyle had a big birthday party in heaven with all of his friends and his greadfather that he loved so much.
I am gonig to get all the things that i need to make his flower garden this week will i hope so.
Will please come bye when you have a min i will keep kyle's site up and runing for a long time.
And thank to all the people who helped make kyle's wish for a 1000 cards.
Kyle has get over 1800 cards now.
Thank you so much in helpng make kyle so happy.
take care and may god bless you all.
Monday, August 22, 2005 8:29 PM CDT
Hello
This is mommy i was going to tell you that AUG 23th is kyle's 16th b-day I was going to have kyle a big party last weekend. But he is having a big one in heaven the best one he could give have. I am going to his chruch on tueday on his b-day i have got 16 ballon's that i am going to let go. For kyle. It has beening 15 days now with out kyle.
HAPPY B-DAY TO KYLE HAPPY B-DAY TO KYLE
HAPPY B-DAY TO MY SWEET ANGEL HAPPY B-DAY TO YOU.
HE WILL BE 16 @11:45 PM ON AUG 23TH
TAKE CARE AND PLEASE SAY A PRAY FOR KYLE
AND FOR ME TOO.
Saturday, August 20, 2005 12:31 AM CDT
It has beening 13 days now with out kyle beening with me but look at it this way heaven get the best angel he could have get becausse kyle was a specail young man and he will stay that way forever. I have beening having so bad days but i look at it this way kyle is free of pain and from MD to. He will be missed and ine day i will see him again running and playing like he was when he was a small child and i know that he is looking over me right now saying mommy quit crying becasue i am ok now. I have my pow-pow with me and he is taking good care of me now to it your time to come to heaven then mommy you can now. Alot of people are still sneding cards to kyle every day he has get his 1000 cards that he was wishing for and he know that i can see the big smile on his beautiful face i can see him now saying mommy alot of people loves me right mommy. And i have alot of great happy memories of me and kyle together and i will thank of kyle every day. I know with all of kyle's flowers that he got i am going to make his a flower
garden and i am going to add flowers every year and keep the garden for a very very long time. I knoe he will be looking at me doing it and saying mommy i am going to be the boss and tell you their i want me flowers at.
Thank you to all who come in a signed kyle's guest book and please please come bye becasue this will make kyle so happy to here from all of the sweet caring people that pray for him and still are today.
Heaven has a very specail angel.....
Monday, August 15, 2005 6:00 PM CDT
Kyle was wishing for 1000 cards and his wish come ture he have over 1000's cards. And thanks to all if the nice people who make his wish come ture. Kyle was very loved and he will be missed a lot. But he will be ok and god will take care of my baby now and one day i will see kyle and he will come running up to my and jump into my arms one day. And thanks to the hugs and hope site that helped me in making kyle so happpy this past few months. And for all that the people have to him like the x-box that he loved playing so much. And thank's to the make a child smile site that helped make kyle happy to he loved going very day to his post office to see if he has a card or a pakeage he had a very big smile very time i come back to the van. He said look at all the people who loves me today.
Please keep thanking about my sweet young man because he will missed alot. his friends at school and his friends from chruch.
may god bless you all
Sunday, August 7, 2005 10:31 PM CDT
Yes i have some very bad news kyle passed away today around 11:45am.Kyle is now here he needs to be and kyle is beening ttok care of the the best peoplein the world god and he know that kyle is a very sweet you man and i will see kyle one day. Thank you for alll the nice cards that you sent to kyle that make kyle so happy very time we want to his post office box and he saw all of the cards and that he has alot of people that love him and he will be missed alot.
The Funeral will be at
Mountain View Baptist Church
5045 East Maiden Road
Maiden NC. 28037
on Tusday Aug 9th 2005
Wednesday, August 3, 2005 10:36 AM CDT
Hello this is crystal kyle's mom we had to take kyle back to the hoptail on Monday night and he was not doing that good i was in to kyle's room after he asked for some water and when i gett into his room he said that he couldnot not breath and after that he was blue and quit breathing and he was upset he he was asking to get into his wheelchair and after that i took kyle to the ER. And his heart is getting weaker and weaker and hopsice will be coming out to the home 4 times a week or more. kyle is still here at the hopstail and he is in 7914 and hope that he will get to go home today his doctor said that she will talk with all the doctor's that is working with kyle. To see if kyle can go home she said that kyle will be morw happy at home not here because kyle's doctor are doing all that we can do to help kyle and please please pray that kyle will be ok because i neeed him in my live. And please please send him some happy mail this make's kyle so happy to get mail and small gifts too.
Kyle Brown
P.O Box 1782
denver NC 28037
His b-day is coming up too Aug 23th and please can you send him a card or two he needs to be happy now and please help in makeing kyle's wish come ture.
May dog bless every one that come's in and checking up on kyle.
Thank you crystal
Friday, July 29, 2005 9:39 PM CDT
Hello sorry about not cominng in and updating about kyle.
kyle has beening in the Hospital for a few days he was so sick on Monday when i took him to his family doctor and he said that kyle needs to be put in the hopital so he called kyle heart doctor and both said that some thing so kyle was put in on Monday night and the doctor did alot of blood tests on kyle one of his meds that kyle has took for about 5 year was not working right for kyle it was like he was getting to much in his body. So we took kyle off of it and now he is feeling a little better now he come home on Thursday around 3:30. But is back like he was back in April and we are Hospice people are coming back in so kyle dose not have to go back into the Hospital because hospice can do what the hospital can do for kyle like IV meds and blood work that kyle needs she come do it for kyle so we can keep kyle happy and what kyle was kyle needs to get doctor said if kyle was to stay in his wheelchair leth him and if he was to stay in bed that is ok too. Kyle is on Oxyone most of the days now. And the doctor said that we are doing all we can for kyle health. let him do what he was why we have him. Becasue the doctors are telling us that kyle can be here for a day or for a year. Now it is up to kyle and god so the only thing is to keep doing the things you are for kyle and keep going to church and going to schoolif he feels like it.
PLease please pray for kyle because kyle needs it very much so and please if you can send kyle some happy mail please do so he is still what to get the 1000 cards he is up to 650 how. And please pray that kyle will be here for his 16th b-day on Aug 23.
Kyle Brown
P.O Box 1782
Denver NC 28037
kyle email is not working right so you can email kyle on the one we are on all the time
brownsuperstar89@aol.com
May God bless you all and take care
Friday, July 22, 2005 7:04 PM CDT
Hello sorry that it has beening so long for the update on kyle is has beening sick all week and he keep getting sick after he eats. I hope that this will go away soo becasue kyle hate's not feeling good all the time. He had his doctor's app with his heart doctor on july 8 and he said that kyle heart was looking good and he hasto come back in 3 or 6 months he doctor said that he thank why kyle is geting sick on his stomach is coming from his heart not working that good and that can make you Nausea. So his doctor give him some meds for it to see if that will help make kyle feel better and alot of praying and keep kyle happy and do what we have to for kyle. And kyle's Acid Refux is making him sick too. Will that is all for now i will update after his app with his breathing doctor on july 28th. And kyle is looking for school to start soon he like going to school to be with all of his friends.
That is Aug 25th is the 1 day and we are going to start out going 1/2 days to see how he is doing but it feels like going all days he can.
And kyle is asking for a big b-day party this year because it is his sweet 16th b-day where does the dyears go.
PLEASE KEEP PRAYING FOR KYLE BECAUSE HE NEEDS IT AND WILL YOU PLEASE DROP A PARY FOR ME TOO.
AND THE BIG DAY IS AUG 23TH
AND IF YOU CAN DROP HIM A B-DAY CARD WILL YOU PLEASE DO THAT TO HELP KEEP KYLE HAPPY THAT IS ALL THE DOCTOR'S KEEP TELLING ME TO DO SO THAT IS WHAT I AM ASKING FROM ALL OF KYLE'S FRIENDS.
KYLE BROWN
P.O BOX 1782
DENVER NC 28037
MAY GOD BLESS ALL THE PEOPLE WHO KEEPS PRAYING FOR MY YOUNG MAN.
Friday, July 22, 2005 7:04 PM CDT
Hello sorry that it has beening so long for the update on kyle is has beening sick all week and he keep getting sick after he eats. I hope that this will go away soo becasue kyle hate's not feeling good all the time. He had his doctor's app with his heart doctor on july 8 and he said that kyle heart was looking good and he hasto come back in 3 or 6 months he doctor said that he thank why kyle is geting sick on his stomach is coming from his heart not working that good and that can make you Nausea. So his doctor give him some meds for it to see if that will help make kyle feel better and alot of praying and keep kyle happy and do what we have to for kyle. And kyle's Acid Refux is making him sick too. Will that is all for now i will update after his app with his breathing doctor on july 28th. And kyle is looking for school to start soon he like going to school to be with all of his friends.
That is Aug 25th is the 1 day and we are going to start out going 1/2 days to see how he is doing but it feels like going all days he can.
And kyle is asking for a big b-day party this year because it is his sweet 16th b-day where does the dyears go.
PLEASE KEEP PRAYING FOR KYLE BECAUSE HE NEEDS IT AND WILL YOU PLEASE DROP A PARY FOR ME TOO.
AND THE BIG DAY IS AUG 23TH
AND IF YOU CAN DROP HIM A B-DAY CARD WILL YOU PLEASE DO THAT TO HELP KEEP KYLE HAPPY THAT IS ALL THE DOCTOR'S KEEP TELLING ME TO DO SO THAT IS WHAT I AM ASKING FROM ALL OF KYLE'S FRIENDS.
KYLE BROWN
P.O BOX 1782
DENVER NC 28037
MAY GOD BLESS ALL THE PEOPLE WHO KEEPS PRAYING FOR MY YOUNG MAN.
Tuesday, July 5, 2005 6:05 PM CDT
Hello,
I was going to tell you that kyle has a great weekend we had alot of fireworks. And a little cook-out on the monday night and on Sat we was to a friends house for a cook-out kyle get to see some of his old friends.That he ha saw in a few years. Kyle is still doing ok this days but he is still having the sick days when he does not what to eat.
Kyle has app with his heart doctor on July 8th this friday will you please pray that it will be a good one because we need this very much will kyle does.
Kyle wish of 1000 cards are up to 595 that is very good and this makes kyle so happy to get the cards and the small package's of cards a school in NY send kyle 200 cards and the YMCA send kyle 50 cards from Linclonton NC.
I know the hospice is still working with me and kyle. I know his doctor was telling me that kyle needs to be happy and why he is feeling good he can go back to school all day if he would like to and for me to keep the bid smile on his face like he see every time kyle is in my office.
The ladys at the hospice team helped me out alot and we have some popele coming over one a month to see kyle and help if needed.
The 1 day of school for kyle is Aug 25th kyle is looking for it he was to see all of his friends.
One bad thing about school the guy who took care of kyle will not be working at the school no more. We have a new man that will be working with kyle. Kyle know him he works at the school now and he will be the one to help kyle please pray that it will all be good this coming up year.
KYLE'S B-DAY IS AUG 23TH HE WILL BE 16 YEARS OLD CAN YOU PLEASE SEND KYLE SOME CARDS.THAT WILL MAKE KYLE SO HAPPY
KYLE BROWN
P.O.BOX 1782
DENVER NC 28037
FAITH,HOPE,AND LOVE
AND NOW ABIDE FAITH,HOPE,LOVE THESE THREE BUT THE GREATEST OF THESE IS LOVE.
Monday, June 27, 2005 1:13 PM CDT
Hello this is mom again. Will kyle is still have the sick days after his eat's. He has app with his heart doctor on july 8th and we are going to talk with him more about why kyle is still doing this. And he has app with his breathing doctor on july 28th for a check-up will you please pray that kyle will be ok. He is getting alot weaker this days he is have a good summer kyle is asking to go to the Zoo and i thank we will do that soon. Kyle's heart doctor wright a note to the hopstice and said that kyle is doing ok and that he thanks that hopstice can come in when kyle needs them too. I was going to tell you about all of the cards that kyle get in mail he has 374 cards and the cards are still coming in.
Kyle Brown
P.O Box 1782
Denver NC 28037
kyle has a new email address:
wheelchairboy89@aol.com
Please come bye when you time
Please keep praying for kyle
Wednesday, June 15, 2005 9:11 PM CDT
Hello a little update about kyle is doing some better but is still have the sick days. Hopstice is now only comeing when i need them Kyle's heart doctor wright a letter to them that kyle's heart is about the some and that it would be ok for them to come out as needed. But kyle will still be under thier care for a long time to comee kyle has app with his heart doctor on July 8th and to his breathing doctor on July 28th . For a check-up and we are needing to talk with Dr.Black about the coughassist bwe thank it is time for one because kyle is not coughing that good on his on no more. Because of his weak's. And hie is now on Oygen with this bi-pap kyle oygen has droped down to 79 and that is not good.
And kyle is very happy to get all of the cards from all the nice people that is thanking about kyle and praying for him too he has get 315 card's
Kyle Brown
P.O Box 1782
Denver NC 28037
May god bless you all
Saturday, June 11, 2005 10:48 PM CDT
Hello this is mom here i was updating a liitl kyle is doing good this days he is happy to be out of school for a few months he goes back Aug 25 kyle did great on his report card he got A's and B's and how he will be going into the 10th grade where does the time go. Sometime i can set down and thank about kyle when he was a baby. I know when kyle was born he was only 6lb 9oz a little boy and how he is over 100lb now and how he is my young man .
We had Bible school last week and kyle had a great time and he got to see all of his friends and i helped with it this year too. Kyle is doing alot betterhis nurse is coming every 2 weeks now not every week . Kyle has 2 app in July one with his heart doctor and one with his breathing doctor so we will have a busy july but that is ok kyle is have a great summer he said and he has over 250 cards that is making kyle so happy to have alot of people that care about him.
So if you would like to send kyle some happy mail
here is his address.
Kyle Brown
P.O Box 1782
Denver NC 28037
And thanks to all of the peoplw who has
took time to come and check up on kyle and for signing his guest book too. May god bless you all.
Monday, May 30, 2005 8:05 PM CDT
Hello this is crystal kyle's mom we had a busy few days here. Some of our friends give him a happpy day kyle got to see alot of cool airplant's and some old cars's too kyle had a great time and we all loved see the big smile on his face and that make my day and all of the people who put this day toghter for kyle and may god bless you all who helped me make kyle so happy and we had a big party my bother son Granduation from high school this weekend to and we had a cook-out and kyle got to see alot of his friends to kyle has alot of older friends it was 7 of them.
Kyle still is having alot of days that he does not feel that good but kyle will not tell me that he is sick but i can tell bye his face when he is sick or nt he had app with his heart doctor at the end of july so please keep praying for kyle because i thank praying does come true.
Please keep sending the cards to kyle. Kyle is up to 200 cards of the 1000 he is asking for.
Friday, May 20, 2005 4:59 PM CDT
Hello this is crystal kyle's mom i am sorrry for it beening so long but have beening very busy around here. Kyle has a great time a the beach and he got in the water and had a great time doing it all. And we want to the Ripley's Aquarium and kyle that is the pictute that is on the 1 page and he loved looking at all the fish it eas over 1000's of fish and he did very will with the long ride it took me about 5 hour's and kyle was tried but we areat for the fist day and the 2 day kyle was up and ready to go kyle loves going shopping at all the little shop's and he got alot of cool things we get some sand and shell's and put them in a jar to keep. And we was very happy for the people who have us the trip and for the money and may god bless all the nice people at the chruch who give kyle the gas cards. And please keep praying for kyle.
take care and may god bless you all
and please keep the cards comeing in he has over 172 of the 1000 he is asking for this make kyle so happy to get them will take care
Sunday, May 1, 2005 11:47 AM CDT
Hello this is mom. Kyle is feeling alot better this days and he is back to the old kyle that is a good to see him like this again. I know his doctor said that kyle is a big figher and he will not give up that fast. Kyle heart doctor said that he will see kyle in 3 mon. And that make me happy but like he said you have to live you life one day at a time. Kyle Nurse Debbie is a great lady and she comes out 1 time a week and see kyle and she give kyle a cool t-shirt and kyle has people like that to keep him happy too. And the Social Worker put toghther a trip to the beach for kyle and me for a few days to get away from here and a lady that has not meet me and kyle is going to pay for 4 night for ous and her church give kyle now it is 600.00 to do what is was at the beach and kyle is so happy about this and he said that this lady was the sweet's lady and that he hope to get to meet her to tell her thank you and that is was so cool of her to help me and mom out because after all that has beening going on for the past 4 months. And thank to all the nice people who has send kyle all of this cards he has 140 now and he loves this go much.
And will you please keep praying for kyle and please keep sending the cards for kyle
OH THE BEACH TRIP IS MAY 11-15
Tuesday, April 26, 2005 6:00 PM CDT
Hello this crystal mom. We got some good news from his doctor's on monday he said that kyle's heart is back to like it was before he want in the hosp and that is so cool that it is like this. But the doctor said that kyle's heart is still weaker and it will keep getting weaker and weaker and that if kyle would get sick his heart will get back like it was this time. But the doctor said to keep kyle doing things like he has done for years and when kyle heart gets weaker but it will not stop all ot once it will take time before it stops working at all. But the doctor's said that kyle looks good and he feels good and that is a good for kyle to stay like this. Because kyle loves going to school and going shopping and going out to eat and the doctor said keep this things up and kyle will be ok for now. This is the frist time we get to talk with this doctor that has seeing him for over 10 years and he said that kyle heart has beening like this for over 5 years now and that kyle still looks good and he said that the doctor who said this things to me he said that he will take care of it and that you cannot give a time on this like this becuase who know how long like he said that kyle could have 2 days up to 5 years who know. But the doctor said that is would be good to have Hospice to come in and check up on kyle. And to help me to. I know the people that is working with me and kyle the Hospice has give me and kyle a trip to the beach for 4 nighs and it is all payed for. and give kyle 400.00 to do what he wwas to do with his and.
And thanks for all the cards kyle has 125 cards of his 1000 and this is making kyle so happy to do that he has alot of cool friends who care about him this much and all the gifts to.
And the big thing is please keep praying for him because praying does come ture and we know that.
Take care and may god bless you all who care so much for him.
Saturday, April 23, 2005 4:57 PM CDT
Hi guys.. You know who this is will i hope so. Kyle 's RN debbie come over on Thruday and she said thta kyle was looking good and that he has color and is not so white and that is good but we had a talk with me and her and she will telling me what the doctor's was telling her about kyle he said that has about 6weeks. But she said that we do not know if that is right or not because the one knows it is god and i hope we have more time with kyle because he is only a youg guy and he needs more time to do all the things that he was to do and more. It is so hard to have to talk about a child that is so sick like kyle. And please please can we get the cards before this time is up i know 6weeks in at the end of may and i hope not because kyle is my life and i need him so much now and he needs me too. Please please pray for kyle and keep sending the cards to make kyle happpy that is all i need is to keep seening the big smile on his face. He had app with his heart doctor on monday and i will ask alot of things and i will updat soon take care and please pray for kyle
may god bless you all
crystal
Saturday, April 16, 2005 1:31 PM CDT
Hello. Kyle is very happy to have all of this very sweet people who care alot about him and who love's him so much and kyle loves all of the Dale Jr pictures that his friends has better in for him. Kyle is very ok today. He has got alot of rest and he needs this alot now with his heart getting so weaker. We had a meeting at school on Tuesday we have cut his days in half he will be going from 8:00-11:00 and we will have to see how kyle is feeling in a few days if he is getting to tried we will cut back more like a few days a week not all week. And the hospire is coming out 1 time a week now to check on kyle and ask if he needs somnething. Kyle has that big smile on his face all the time thinging about all the people who are very sick he did that why he was in the hosptal he was checking on a little boy who was very sick and he come back to his room and said mommy who does god make little sweet baby sick? It was so hard for mebut i said god has a plase for all of his sweet babys and for all of his kids too. Kyle has a check up next week On Monday April 25th 2005. I hope to get to talk with the doctor's more on that day to askd things that will make me feel alot bet better. But like all mom's ask why are this thinging going on with my child. But like the doctor's said that kyle will not go out with out a fight kyle is so happy to have all of his freinds because his friends make him so happy and that is all we need to do for kyle now.
Kyle has got 12 cards in mail this week and we are going for over 1000 cards will we hope so.
And will you please please keep praying for kyle because he needs this and so does his family to becuase kyle loves making people happy.
Kyle loves playing his playstaion 2 he would to get some new games for it to play now becuase he will not be at school he will be home more. If so he loves sports games
Kyle was talking about that he would love to get one of the new sony PSP and some games for it if you can help me with his please please i would love you and may god bless you all who take time to do this for my sweet young man and he would like to get some movie's for it too.
and he all ways wanted to go on a Cruise to Hawaii that is the big boat he he keeps talking about.
will i will be back soon take care and i love all of the people who comes bye and checks up on my young man.
Sunday, April 10, 2005 1:38 PM CDT
hello, this is mom crystal i have so very bad news about kyle. He was sick for over 1 1/2 and we not gettimg better and on Thurday night he was vomitting alot and i called his family doctor and he said that kyle will be ok and if he was not better that we need to call his heart doctor so that night he was still vomitting alot so i called his doctor and the said that i need to take him to the ER so that kyle's doctor could check him out and kyle was so weaker for vomiting he put kyle in the hospital and we did some blood work and a chest xray and the xray come back ok and so did the boold work was all ok. And then kyle had so test on his heart and that was the problem it is his heart and kyle getting so weaker now that he heart so slowing down alot and the doctor said that kyle is on all of the meds that he can take for his heart. Kyle is going to not be with ours for much longer but kyle is a big fighter and he will not lay don for the he will fight to the end and now the doctor said that it is up to kyle and god becuase we can not help kyle now because we have done all we can for kyle and now the only to do is to keep kyle happy do all the things that he ask's ous to do and that is what we are going to do some why i will get his on the big boat that he is asking to go on and. And if someone what to help make kyle wish come true please do so and god will bless you all who will help me out in my and kyle needs now becasue kyle love's doing this with his friends and he loves to have a good time and please please pray for kyle i hope this will not be that soon but who know right. Kyle is a very sick young man. Now the doctor said that it is a good time to get Hospice to come out to see kyle becuase the doctor said that this will come and go when kyle will not eat and that he will to have a break for eating to give his body time to get over it and hospice could help with all of kyle's needs. That was so sad to here the words hospice. That kyle will get so tried and that could make his heart get that much weaker and that is not good for kyle to do this his heart is working very very slow and the blood that is going through his heart is going back into his body not throught his heart because of the very weaker heart. If you please please keep pray for kyle that is all we can do now because the doctor said that it could me today or it could next week who know but we know that kyle is not going to get better he will only get poor and poor to his take his last breath. Me and his father has not talked with kyle about this because we are going to keep his live like it was because we do not what kyle to get down because that could be bad for his heart so we are going to be keeping him in school and do all the things he loves to do and take one day at a time. that is all we can do now.
PLEASE IF YOU CAN HELP ME IN MAKEING KYLE WISH COME TRUE PLEASE PLEASE DO SO AND PLEASE WILL YOU KEEP SENDING KYLE CARD HE SAID THAT HE WOULD LIKE TO HAVE 1000 CARDS HE LOVES GETTING THEM AND HE HAS A BOX WITH ALL OF THE ONE'S THAT PEOPLE HAS SENT HIM BEFORE.
KYLE BROWN
P.O BOX 1782
DENVER NC 28037
MAY GOD BLESS YOU ALL WHO COME IN A READS ABOUT KYLE AND HIS FAMILY TAKE CARE LOVE AND HUGS
Tuesday, April 5, 2005 3:49 PM CDT
hello kyle has beenin sick for over a week now. Had to take kyle to doctor's on Monday 4th 2005 he give kyle some meds for his upset stomach he has last 10 pound. Every time kyle will eat it will come back up and that is not good kyle is getting weaker and he gets so tried very fast he now and we had to get more blood work done to check on the meds that kyle is taking to see what is makeing him sick the doctor's said that if kyle still not feeling good i need to call his heart doctor's to make appt so he can see if kyle heart is working ok. His BP keeps droping and that can make him sick to and tried to. So hope to get the news about the blood work and the end of the week. Will pleae keep praying for kyle and please keep sending the email's and the cards becuase kyle loves getting them and it make kyle have a big smile on his face and that is so sweet that we all of the nice people who stop bye to see how kyle is feeling and may god bless all of you.
Wednesday, March 30, 2005 9:31 PM CST
sorry it has beening so long for a update. Kyle has beening sick all week and i had to call his doctor on friday becuase he was sick and his doctor was asking how is his breathing and keep a eye on how he id feeling and if he does not feel better i need to take kyle to the ER and after a few hour kyle was feeling better and he has not beening eating that good for a few weeks now he is eating a little not to much. But kyle does not have a fever that is a good thing. The doctors said that kyle is on all the meds that he can take for his heart. Have to take kyle back and get some more blood work on Thursday to check on his heart meds level. Kyle had a good Easter and thanks to all of the nice people sent kyle Easter cards and that make kyle so happy to get them.
I have a site for you to check out go to
http://www.gratefulness.org/candles/light5.cfm
SO PLEASE KEEP PRAYING FOR KYLE AND ALL OF HIS CARINGBRIDGE FRIENDS. THIS KIDS NEEDS THIS IN THEIR LIFE.
AND GOD BLESS YOU ALL WHO HAS COME IN A CHECKING UP ON KYLE AMD WHO HAS SENT HIM ALL OF THIS SWEET CARDS.
PLEASE PLEASE PRAY FOR KYLE
Wednesday, March 16, 2005 7:36 AM CST
Hello this is mom. Kyle is feeling alot better this days and he has app with his MDA doctor's on Thurday for a 6 month check-up. Kyle is back to his old safe again will i hope so. Not to much to wright about today. We are both doing very will all the bad things going on in our live but one thing we have god on our side and that is all me and kyle needs and our friends the ones that we have meet on line and friends at chruch. Will we are having so bad weather here today calling for some snow but the only thing we are getting is the rain. Kyle hate bad weather because he can not get outside to go to his gradmother house he loves his gradmother alot that is good and she has helped me and kyle out alot. Will please keep praying for kyle because he needs it now. Why his heart is getting weaker and weaker and kyle is on all the heart meds that he can took and his doctor are keep a close eye on kyle heart because of his age. Because alot of young man do not live to be in the 20's that is so sad wish for the best and we will have kyle a long time with all of your wishing and praying it will come true. But one thing god has the last word.
WILL YOU PLEASE HELP KEEP KYLE HAPPY PLEASE PLEASE CAN YOU ALL SEND KYLE SOME HAPPY MAIL BECUASE HE HAS NOT GET THAT MUCH IN THE MAIL IN THE PAST FEW WEEKS. IF YOU CAN PLEASE DO IT FOR KYLE. KYLE IS A SWEET YOUNG MAN AND ALOT OF PEOPLE LOVE HIM SO MUCH.
TAKE CARE AND MAY GOD BLESS YOU ALL WHO COMES IN A READS ABOUT KYLE AND SIGNING HIS GUEST BOOK HE LOVES READING ALL THE THINGS THAT PEOPLE WRIGHT HE HAS A VERY BIG SMILE ON HIS FACE AND HE TELL ME THAT ALOT OF PEOPLE LOVE HIM
Sunday, March 6, 2005 5:46 PM CST
Hello i am updating a little about kyle he is feeling alot better this week he is not having no more chest pain and that is a good thing. Will his doctor app on Feb 25th 2005 was not as good as i would like for it to go he heart is getting weaker and weaker bye the day. The blood work has not come in or not make it back to the doctor hope to get a call from his doctor this week about the test.Kyle has app with the MDA doctor's on March 17th for a check up so we can tell the doctors what is going on with kyle and how things are going with school things like that.
I need some help for me larry can over to see kyle and he said that he needed to tell me the true about how he was feeling about all the things going on with kyle. Larry said that he hate me so much because i am killing kyle becuase my family have kyle Duchenne MD he said that he can not be around me no more and that he hate me and he said that this is all on me because his family didnot give it to kyle my did and to hope that we are happy i give larry a son and now i am killing kyle.
Saturday, February 26, 2005 12:14 AM CST
Hello,
We did not get good news about kyle's heart on friday. His doctor said that kyle was not doing to good and it is back like it was when we got the bad news a few mounth back he said that kyle is getting very weaker and so is his heart i have to take him back to doctor this week to get some blood work to see if we need to cut back on his heart meds because heart meds he is talking is making his Blood P is droup very low. Kyle was a little up set but kyle said that we was not going no where for a long time and his doctor said that the bi-pap is a big thing to do because it will help his heart and he will not so tried as fast. So Please keep praying for kyle and please plase will you guys who reads this please will you send kyle some happy mail my poor little guys is going thow a hard time now.He had to go back in 3 months for a check up and please pray that kyle heart will not that much wesker but like we all know this is comeing from his Duchenne MD and i hate see kyle go throw this but the only thing to do for kyle is to make him happy.
Kyle is having a good time in high school only 4 months to summer break and kyle loves thim of year. Kyle was asking me to if i can take him to the beach this summer. Kyle loves the beach.
will take care and god bless you all and please come back in a check up on kyle all you like
Thursday, February 24, 2005 3:05 PM CST
Hello, I have a little update about kyle he is not doing to good today he is having alot of chest pain and i called his heart doctor and he said that he would need to check him out and do some EKG and all the works and he is not eating that good for over a day need and he get sick every time he eat somethings and his doctor said if kyle's heart is not working right it will make him sick like this. We had app in the moning at 8:15 so the doctor can check his out. And he has app with MDA doctor's on March 17th at 8:30. So please keep praying for kyle becasue he needs this with all the thing going on with his dad and how his dad has a new girl in his live and kyle hate that very much because he dad has only beening on for 3 months. And it is all come out he had her when we was still a family now he has her living with him and kyle has beening very upset and this is makeing kyle sick. And the girl is only 3 years older then kyle. But i thank his dad his going cazay. Please come bye when you have the time becasue this makes kyle happy to read all the thing that people wright in his guestbook and getting all the cards too.
Take care and may god blees you all who has come in and checked up on kyle all the time
Tuesday, February 15, 2005 7:41 AM CST
Good morning. Hope you are have a good day. We are having a warm spring day here in the 70's today. Kyle loves days like this so he can go outside and go to his grandmother house. A few things i was going to tell you. Will kyle is doing ok with all the things going on in his live right now with his daddy. Kyle and i are so happy to have friends like you guys that come in a look at kyle's pricture and read about kyle and for taking the time to do this for kyle. It makes kyle so happy you get all the email and mail that he has beening getting from you guys. And a very good friend and her friends as pad for me and kyle to keep AOL for a year so we can keep talking with you guys on line. May God Bless her and all the ladys who did this for me and kyle. With kyle health he is doing very well at this time with his heart is about the same but a little weaker.And he has had a very bad cold but he is kicking it out he said. Kyle is doing very well with his bi-pap to but hates it.
With his cold he has not beening using the bi-pap but now kyle is back on it again. His has no app to April with his check-up at the heart doctor's. The Tumbleweed Foundation has sent kyle a very cool blanket with dogs on it and he is very happy with it too now he has the blanket with dogs that the make a child smile sent him and now the one that Tumbleweed send him we have dogs all over the house here now.LOL but that is ok with both love dogs. Will need to run please please keep come back to check up on kyle and please keep praying for my kyle because he needs it and if you have time drop him a email or a card he loves getting this in the mail.
Kyle Brown
P.O Box 1782
Denver NC 28037
Saturday, January 29, 2005 11:52 PM CST
Hello this is mom and kyle. Kyle is having a very hard time in his live after this dad movied he is back not eating and he is not feeling good more of the time. So i called his doctor's and we are going to set up a time for kyle to go and talk with someone about this and hope that they can help kyle out more then i can. Because kyle asked me things and the only thing i can do is cry. And i am going to get some help to i thank this will help me out alot. Kyle is doing good in school he got 2 A's and B's on his report and he was so happy about it. And his mo-mo give him 60.00 for all the good grade.Will kyle app with the MDA doctor was ok he has got alot weaker and come not feed his safe to good no more but we will keep praying that we will keep him around for a very long time. And that you all who send kyle so happy mail because he needs it very much and he loves right the cards and all the people who sign's his guest book too. And please please keep praying for kyle.
Monday, January 17, 2005 11:18 PM CST
Hello me and kyle are back on line for now who know's how long we are having a hard time right now kyle dad moved out after the holday and kyle is very upset at the point and he is not beening feeling to good. But i hope with all of his friends that he has meet over the past few years on line will make him happy if you guys could send him a e-mail or a card he would like that alot. And i have no ieda what we are going to be doing now i have not job and i will have to pay this bills here with 1000.00 a month hope we can do it. Will god is on our side and he know what to do for me and kyle. I have beening keep busy after his dad moved out me and kyle will be ok will i hope so. Kyle has a doctor app this Thurday 20th at the MDA doctors. I will right after we come. now i have to do all the doctors and school meets with his dad who know if he will come or not. Today was the 1 time his dad come over to see him it has beening 3 weeks kyle was a little happy to see him. But stay mad at him for this all.
PLEASE KEEP PRAYING FOR KYLE HE NEEDS THIS VERY MUCH SO NOW IN HIS LIVE.
pLEASE DROP HIM A E-MAIL OR A CARD PLEASE PLEASE
Saturday, December 25, 2004 8:32 PM CST
Hello, A little update on kyle he is still doing very well with his heart and with his bi-pap. But we canot kick the cold it has beening 3 weeks now with the cold hope it will go away soon kyle hate having a cold. Kyle had a very good christmas he got alot of cool things he said. And thank so much at the hugs and hope people for the christmas elf package that kyle got for christmas and to the nice people at the Tumbleweed Foundation to and for the Bridge of Dreams too this people care so much for all of this kids.
And hope that you all have a great new year too.
Wednesday, December 22, 2004 11:42 AM CST
Hello, Kyle is still good but he has a bad cold again. Kyle is so happy about christmas. He is asking for a new TV and a DVD player for his room so he can play his game. One of his best friends set up today to take kyle and meet Dale Jarrett he drives #88 and kyle was so happy about that and Dale Jarrett singing the hat that he give to kyle too. And the only thing on kyle's face was a very big smile and that made our day so much.
Will take care and hugs to the familys that sent kyle the gifts for christmas he loves them all and he has played with the Spider-cards and the Hand game Tetris and the all of the playstaton 2 games he loves football games and he got one for his game cube and 2 racing games to.
And i hope that you keep kyle in your prays every day for me and larry.
Wednesday, December 15, 2004 4:46 PM CST
Hello we hope that you all have a good xmas and a happy new year too. Kyle is doing very will with his heart to thank god for that and thank you all who prayed for kyle over the past few months because i know praying does come true. ANd thank you to all of the nice people who has send get well cards and cards to make kyle happy and he has get alot of xmas cards too. That make kyle so happy when he know that alot of people all over the world care about him.
Kyle is so happy about xmas he is asking for alot of things and i hope to get them for him but who know about that right. He is asking for a TV and DVD Player for his bedroom. So he can play his x-box in his room. And he is asking for x-mas games that is all he does now plays them games. Kyle was not to happy about this week at school he has tests this week. But he likes it because he get out of school at 12:15 every day he like that. Kyle has 2 weeks to sleep in he goes back Jan 4th that is good me and kyle can go alot of things and have alot of fun playing all his new games.
Kyle is still very upset about his daddy moving out after the xmas and can you please all pray that me and kyle will be ok and i need some help with some of the things that kyle needs because some time it take alot of money to do this for kyle so if yoou know who i can get up with please email. I hate to ask but it is all for kyle.
Will take care and i will update soon.
And Please keep praying for me and kyle.
Friday, December 3, 2004 6:24 PM CST
Hello,
This is mom Crystal we get great news about kyle today.
He had a app with his heart doctor today and he asked me and larry what we was doing for kyle and we said why becuase kyle's heart is working great now it is like it was 6 months ago. I said we was praying all the time he said keep it up because something was working good.
And thank you all for praying for kyle i know praying does come true. LOVE All
Sunday, November 28, 2004 9:45 PM CST
Hello this is mom kyle is doing ok with this at school and with doctor app will we hope so. He has app with his heart doctor this friday. And please pray that kyle will be ok. ANd i will wright on friday after we come back ok. And thank you for all the cards and things that you guys has sent to kyle though the months it make kyle so happy to open them all. And thank to the ladys who did kyle's dog quilt to i am so happy to see how mony people care about kyle and me we need this more now. Because soon it will only be me and kyle. Larry can home and said that he was going to be moving out in Jan with no word only tell me that he was going to SC to a new job. So now what can i do i have not job have not worked in over 10 years because i was taking care of kyle what to do i have no money now and i going to take care of my baby.
Sorry you guys donot need to know this but me and kyle have beening so upset with this all. I have a good friend that i was talking with i know she is going to hate me now but i am so sorry about that i said that it was my sister but all the time it was about me and larry.
With all of this kyle could get very sick with his heart and he could not be here on monday.
So please please if you can me with this please email me ok.
Wednesday, November 24, 2004 8:21 PM CST
Hello his is mom. Kyle is doing very well at this time he has a app with his heart doctor next friday Dec 3. And please pray that kyle will be ok. And it has beening raining here all day. Me and kyle want out to eat. and when we was coming in the house up the wet ramp kyle going to the side and fill over off the ramp and hurt his arm but he is going to be ok. But the wheelchair fill on top of me. Kyle was yelling if i am ok and i said yes. We are going to my mom house to help her cook dinner we are going to have a good time. But it is so hard with out my daddy but i will be ok it has beening cloes to 5 years now. And with school for kyle it is looking good we are having a meet in Jan to talk and see how things are doing with all of kyle's class.
Kyle is doing very will with his breaks that he is taking before classes and if he needs more it is ok to. But kyle has beeing so mad because we are having some family problems will his dad is. That is all i am going to say about that becuase this is for kyle and not for larry's problem but if someone could help me that would be good to. Kyle loves his quilt that the ladys from the love quilts made for him. Will take care hugs.
We will be ok here will me and kyle will. Daddy is arting cazy and he is having big problems with his self. So pray for kyle that is all i am thanking about.
Saturday, November 20, 2004 8:47 PM CST
Hello, This is mom crystal.Kyle is doing very well at this tiime with his heart problems and his brathing problems Kyle is doing very will in school with the breaks and we are going to see if this is going to work for kyle and we are having a meet in Jan this is for his IEP if we need to change something. But we are having so problems righ now and i will come in a update when i have the time. I am sorry about this but this needs my 100%.
And please please pray for kyle because he needs this in his live and so do i.
Saturday, November 13, 2004 12:25 AM CST
hello this is mom i was updateing about kyle he is doing ok but still is having the sick time off and on all all friday at school and a home. But he said that he is going to be ok so i took him to the school football game last night for a little and the team win the game kyle was happy about that. He had a good check up with his sleep doctor last friday. He said that the bi-pap is working good for him and he is doing very will and that could help him out a little with him not to get so tried at school and at home so we will have to see over the next few weeks. And a big thank you for all the nice cards that was sent to kyle over the time he was not feeling good. This is the quilt that the ladys made for kyle and he get a lap quilt and bed quilt and the nice ladys come to house and give it to kyle and the lady come with dinner to and that is a big thank you for the ladys kyle said that he loves the quilt and he was sleeping with it every night
Saturday, October 30, 2004 3:00 PM CDT
Hello is this mom updating a little about kyle. kyle had a app with this breathin doctor on friday this was about his bi-pap to see if the levels are still working ok for him. I know last week at the football kyle hurt his arm and had to take him to get x-ray and the doctor said that he sprined his thumb and that he will be ok in about a few weeks.
It is all ways somthings around here. But we are takeing one day at a time that is all we can do for now and please keep praying for kyle today he has not beeing feeling to good and he was in bed playing his x-box games and that is bad if he is asking to play them in bed. So he get up at 2:30 and how in his wheelchair and he said he was feeling a little bet better now...
Hope that you keep praying for kyle he needs it very much so and with his heart it about the same will i hope so i know the doctor was telling me that when kyle is sick it is all coming from his weaker heart so please please ask all of your friends to pray for kyle to and
please keep the cards coming in this is all kyle was asking about all the time is the very nice people going to send me some very cool cards
Monday, October 25, 2004 2:54 PM CDT
Hello this is crystal kyle's mom i hope it will work this time i have beening coiming in to update but i can not get it to work. Will kyle had a dr app friday with this breathing doctor and he said that kyle looks good but his breathing is ok it is the same as it was for a few months now that is good thing thank god for that all of you guys praying for kyle is coming true. He has a app with the doctor about his bi-pap this friday so pray that it will be ok to. We are hopping to have the meet with the schoo, this week I have beening talking them for a week now so. I am getting alot upset with them. I said kyle's heatlh is the 1 thing i am looking at and school is 2 on my list.
About his heart it is same kyle is having some chest pain but as mony as he was having that is a good thing. He goes back at the end of Nov for a check up.
I Know now i am having to go to a heart doctor soon too. Because with kyle Duchenne MD i am a carrier of if and all of kyle's doctor are telling me to go get my heart checked out so i was at the doctor today for a check up and he is calling the heart doctor to make me a app.
pary for me and kyle now take care
Friday, October 15, 2004 9:30 AM CDT
Hello,
Kyle is feeling better today and he said hi to all of the people that comes in a checks up on how he is doing. And we are have a meeting at school on Next Tuesday to talk more about kyle's needs becuase of his heart problems the doctor said that this would be good for kyle to only go half days because he get so tried. And kyle doeen't need to get this tried becuase he will take him about a week to get back and not like me and you a little rest and we are back doing the some thing. Kyle has a doctor app with his heart doctor at the end of Nov. But one thing kyle loves to do is go to school and talk with his friends and loves to go to football games on friday night and he like to go shopping at the mall. But kyle is still getting sick with chest pains and some days but kyle said that he will be ok and god is with me all the time and if i go he will give me my gradpa and we can play and run away and have a good time.
and he has app with his sleep doctor next friday. And app
with his breathing doctor the next friday.
we are going to be very busy for the few weeks here.
But please keep praying for kyle we need this so much. And please keep sending kyle cards in the mail it make him so happy. will take care hugs to you all.
Friday, October 8, 2004 8:24 PM CDT
Hello this is crystal mom i was updateing a little kyle is feeling better this days and he has a doctor app with his heart doctor at the end of Nov for a check up to see how his heart is working and more test kyle hates all of them all the time i would to if i had so moning doctor to.We have kyle on a lot of people chruch pray list and hope this will keep kyle here with ous longer. And thinks to all the people that is helping me and kyle dad get the chair lift set for kyle and all the cards that is coming in and kyle is so happy with this all. We have to have a meeting at kyle's school about kyle get tried and to see if we can cut his classes in half to see if this will help him out a little. And please keep pray for kyle and to all this kids here on this site to carinbridge because this kids are needing people to pray for them every day to. Kyle has so bad chest pains last Sunday and i called his doctor and he said to keep a eye on his breathing and i need to i can come the office for a check up. So i did that and kyle will feeling a little better and no more chest pains. That is some good news. And if you and help with kyle chair lift set please do so if you can.
Thank you so much for pray and please keep do this if you know people at your chruch please please can you please put kyle on pray list i do belive in prays coming true and we have to live one day at a time. But i am not looking for not haveing kyle with me all the time he is my lift and my only kid. But i know one day i will have to let him go but please please not now.
Dear God i know you know best but please please do not take kyle away for ous now he is only a young boy and he could have alot more fun with his frieds and family. So i am praing for alot more years with kyle. Amen.
Saturday, September 25, 2004 7:12 PM CDT
hello kyle had a app with his heart doctor on friday. And we get some very news about kyle's heart he said that kyle is getting very weak and so is his heart to. He said that kyle heart was working at 65% 6 months ago but now it is only working at 47% now and he was telling me and larry that we are needing to look into a Heart Transplant for kyle so that we can keep kyle he with us. And he will talk with all heart doctor and with the Heart Transplant doctor to ask if kyle could have a Heart Transplan. Because kyle's doctors has not done a Heart Transplant on kids with Duchenne MD and he will talk with more doctors this week and will call me back on Monday. And the doctor is going to talk with kyle's MDA clinic doctors to see what is beat for kyle. But we got a 2 call and he said that he had a meeting with all of them for 3 hours and all come up with this will because kyle is getting very weaker the doctor said that kyle will not make it thew the suy. SO we will keep kyle happy and with alot of love and the doctor said that kyle can live 6 months or 6 years we do not know. Be kyle is a very sick young man all we can do for kyle is to keep him happy and pray for kyle and hope we will have kyle for a long time. I Have not said a word to kyle so if you can send kyle some cards send him happy mail and not get well cards please. We was going to tell him if that we can do the heart Transplant. But now we know that cannot have one i will not tell him because he does not need to be upset and want him to be very happy young man. I am only saying this because it is all for kyle we are need of money at this time kyle is asking for some money so we can take kyle to this trip he is asking he is asking to go on a big boat so if you can please help us in this time of need i will be so happy because dad is the only one working so please if you can got his i will love you guys so much because kyle is the only thing i thank about and the last thing at the end of the days. Kyle is my live and i donot know what i will be with out my boy. So please please please pray for kyle in his time in need and please pray for kyle and if you can help me and larry with please do so because we want kyle to stay happy to the end .
Please send kyle a card or something because he loves this so much and he has the big smile on his face when he goes and check his mail. So will you put kyle on all of all the pray list that you can because i thinking pray does come true.
I hate to ask because you please help me and larry out to he is going to have to time some time off work to and he is the only one working here is if you that is ok and if you cannot that will be good too.
God bless you all who comes in and checks up on kyle he loves you all.
Crystal and Larry Brown we have opened kyle up a checking acc for all kyle's needs.
Monday, September 13, 2004 9:44 PM CDT
Hello i am updating for kyle. Kyle is feeling a little better today. Kyle is having alot of problems with his Allergy and his Sinus has not beening on his Bi-pap because of his allergys so more meds for that now kyle hate to have to take all of them. We had a app with the MDA this Thurday but this come up here and had to make new app. And his a app with his heart doctor next friday.And with his Liver i going to talk more with the doctor this week. And like you all kyle that kyle is geting weaker and weaker bye the day and so is his body. And this heart and Liver and Kidney and getting weaker and weaker bye the day to. But kyle is so happy and this is not getting him down as more now i thank he is going to be ok will i hope so. I know kyle said to me a few days ago that god is on his side and he will be ok and i cryed. Kyle is a sweet young man and we all love him so much i know kyle and his dad larry are going hurting trip soon going hurting for Elk kyle is looking for this so much larry and kyle needs this time togther because larry works all the time becuase i donot work i stay at home mom and take care of all kyle's needs like doctor app and taking him to school things like that. I have opened up kyle and bank Acct. So if you can help out with his i will be happy and so will kyle we are looking for a lift chair for kyle and it is 600.00. But we looking like this if kyle needs it god will find the way for us to get it done. Kyle is all i have and he is sweet kid and i Love him so much i am crying now. We was at chruch this sunday and kyle looked at me and said when i die can i have all blue things blue flowers and i said yes you can have all the blue you want.
Kyle know all to much and he know what is going on. Because the doctors ask me and larry about takeing kyle out of the room when he is talking with ous i said no because kyle will ask me and larry later so why not let kyle here from the doctors.
And to all the people who has sent kyle the get well cards and all the little things like that.
And Kyle needs for all of you to please please please pray for him
WE LOVE YOU ALL THAT COMES IN AND SIGN KYEL GUESTBOOK AND THANK YOU SO MUCH IN MAKEING KYLE FEEL LOVED
Friday, August 27, 2004 5:40 PM CDT
Hello this is Crystal updating for kyle. He is feeling better give day that is good news to here right. Kyle had a very good time on his big day. He get alot of cool things and get alot of money. We had about 30 people here this year. kyle get alot of DVD movies and a new DVD player to he was so happy. That was cool to see his face when he opened all the gifts. Kyle get alot of cards for all the people from the site that kyle is on like over 150 cards and alot of gifts to. Kyle get a laptop for kathy she was a very sweet lady to get kyle his laptop and printer to and. I get a e-mail from Kathy best friend on Sat Aug 21 telling me and kyle that Kathy passed away on Thursday Aug 19. And he said that he was asking how to get up with ous and he want back on Kathy PC and find kyle e-mail address and when i was telling kyle about her he was crying because her and kyle wold set and talk for hour thew IM. On Monday the laptop come for kyle and Thursday the day she of death the printer come in. She was so nice to does this. I was telling her that she was a gift from god. Kyle has a few doctor app in Sep. He has a app with his heart doctor on Sep 10 and a app with his MDA doctor on Sep 15. For a 6 month check up. and talk about kyle needs if he need new things for his wheelchair and things like that. Kyle is doing very good in school and the helper that he has does a very good job with kyle and all his needs. He will be starting his OT at school 2 times a week again. Kyle said that this was ok. And thanks to the people at the hugs and hope for sending kyle a b-day boxs this make kyle so happy and kyle and i made the cake and put up the happy b-day things all over the house we had a very good time doing all of this on kyle big day. We had a party on Sat Aug 21 for friends and family and on Aug 23 his b-day it was me and kyle and daddy we had a very good time took kyle out to eat and took him shopping with all of his money he get some new shoes and a new playstion 2 game football NCAA 2005 and a move DVD moies he has 10 new movies that he get for his b-day. But i thank kyle is coming down with a cold so will have to keep a eye on that to. On Tuesday i had to take kyle to the doctor because he was in alot of pain with his back. So i called the doctor to talk with him about kyle back so i took him and the doctor said that he would like for kyle to pee in a cap that was a site to see so we did it and the test come back a like high so he said that he was going to do more test on kyle so here we go to the Hopstail for some bloodwork and kyle hates this very much but he did very will this test was for his liver because all the meds that kyle is on it could done something to his liver. And will call me back when he get the test back hope that will be soon i hate have to stall around the houes. So that was the week here. I was going to tell you all who stops in a check up on kyle all the time we have opened up a check acct for kyle and his needs. Because we are haveing so problems with money now with only daddy working we are looking into getting a lift seat chair for kyle so that he can get out of his wheelchair so he can watch TV and play his games and play with his Dogs Lady and Max. So if you can Donate some things to kyle. I know that alot of people was telling me me the only was people will help or Donate money is that the people can deposit the money right into kyle's acct. But here in NC we cannot do that so i am asking if you can send it to his P.O Box 1782 Devner NC 28037 and i can put it in the bank for kyle's needs if that is ok with all of you guys. So if you can help that would be good but if you can not that will be ok to because god know how we will get the money one day. Because daddy was 24/7 all the time now. with a little help daddy can take a little broke and have time for kyle. Because kyle misses daddy so much now. Like we do not know if kyle will be here for much long or could be for years who know right only people know is god. Will take care and i will update soon.
Kyle said that he loves you all and please please help my family out.
Saturday, August 21, 2004 10:28 AM CDT
Hello, Kyle is feeling about better this days that is a good thing. And the bi-pap is working very will but still doesnot like it to good but kyle said that it will be ok. And it helps kyle sleep better.
And the baptism went very will i am so pound of kyle. Because kyle does not like the water at all. And i got to help out with kyle bening baptisms. And i know if i said that i was getting baptised to with kyle. Kyle was asking if can do this with him a so i did that made kyle feel alot better about doing it. After kyle was baptism he was telling all the people that come up to him and was talking with him he said that god is in my heart now and forever and we are said yes he is very much so. And all the people was crying when kyle was beening baptism. I know when kyle was asking me mommy are you crying and i said yes and he asked why and i said that was a good cry and he was ok. But alot of people was asking to help with kyle. Because kyle cannot be moved to much because of the rols and wines that are in his back to the man from the church picked up kyle's wheelchair and carried it to the water for kyle. Because it had a little mad and kyle's wheelchair could not get thew it. And this was the 1 lake baptism in the lake for about 15 years at our chruch this was so cool kyle was happy about that to.
WILL TODAY IS THE BIG B-DAY PARTY FOR KYLE 15TH B-DAY AND WE ARE GOING TO HAVE A LOT OF FUN. BUT THE WEATHER MAN IS CALLED FOR RAIN TODAY HOPE IT WILL NOT START RAINING TO AFTER HIS PARTY BECAUSE KYLE HAS BEENING LOOKING FOR THIS DAY FOR SO LONG AND THAT WILL BROKE HIS HEART.
KYLE HAS GET ALOT OF B-DAY CARDS THIS WEEK AND ALOT OF COOL GIFTS TO FROM ALL THE NICE PEOPLE FROM ALL THE WEBSITE THAT KYLE IS ON THE LADY WHO ARE MAKING SQUACES FOR KYLE'S QUILT HAVE SPOILED HIM THIS WEEK BUT THAT IS OK HE NEEDS THIS TIME. AND A BIG THNAK YOU TO ONE OF KYLE BEST FRIEND AND HER BOYS THAT SENT KYLE A LAPTOP PC FOR HIS B-DAY AND A PRINTER AND A BACKPACK TO CARRY HIS LAPTOP IN. SHE IS LIKE A ANGELS SENT TO US FROM GOD.
KYLE HAS NOT DOCTORS TO SEP WHEN HE HAS TO GO BACK TO THE MDA DOCTORS FOR A CHECH UP. AND HAS NOT BEENING SICK FOR A FEW WEEKS NOW THANK GOD.
WILL YOU ALL KEEP PRAYING FOR KYLE BECAUSE PRAYING DOES COME TRUE.
AND KEEP COME IN A SIGNING KYLE'S GUEST BOOK BECAUSE HE LOVES TO READ THEM EVERY DAY.
TAKE CARE AND GOD IS WITH OUS ALL.
Sunday, August 8, 2004 8:30 PM CDT
Hi this is mom again updateing kyle's page for him like you all kyle has beening having problems with his heart and lungs. Like you all know that kyle has very weak Respirtay muscles that coming from his Duchenne MD.ANd that his body cannot fight off infections as well as me and you. Will kyle is doing very well with the bi-pap. But at 1 he was hating to put the mask on. The 1 night he was up all night and did not sleep at all will for about 2 hours. And that was very hard on him. But the 2 night it was better kyle slep alot better. And kyle said that he was feeling better in the moring that is what we are looking for to make kyle feel better. Kyle is liking his 1 year of high school and he is happy to see his old friends and making new one. Kyle is has a very good man who is kyle's aide that is takeing care of kyle at school with all this needs. We are very happy that the school get kyle the help that he needs. We had meeting anf meeting about this before school and the lady over the EC classes said that kyle didnot need the help be with all the fight we had to do we get the helper for kyle that was so sad for a lady that has never meet kyle and was telling us that kyle was not in need of that kind of help. I was so mad that i had to walk out of the meeting before i said something that was not nice. We have beebibg fight this school system for a long time but we get what we want all the time because kyle needs this. And kyle is getting Occupational Therapy thought the school system and all so Physical Therapy as need the lady come and check up on kyle 1's a week but if we need something for kyle she is right over to help. The Physical Therapy from the MDA office come to the meeting we had a she was so mad at the people that was over the EC classes and she was telling them that kyle has to have this and you all know about the laws and you cannot tell me that this young man does not need that kind of help and so was the PT from the school system was not to happy about that meeting to. Will now we have ti help that kyle needs at school this year but who know a knows abot next year.
Will that is all of that kyle has some doctor app's coming up he has one this friday about his bi-pap see if the levels are right for him and he has a heart doctor's app on Aug 24th to do a EKG to see how his heart is working with the new meds. Kyle said that is was feeling better and he was not feeling funny. We will have to after the tests are done and we set down with the doctor. He has a MDA App in Sep to see all his doctor kyle sees about 5 doctors that day alot for a kid to have to go thought. But one good thing kyle likes them doctors Kyle had beening go to the some MDA office about 11 years now.
WE ARE HAVING A BAPTISMAL SERVICE FOR KYLE NEXT SUNDAY
AUGUST 15TH AT THE LAKE AND CAN YOU ALL PRAY FOR KYLE I AND SO PROUD OF KYLE FOR DOING THIS. A THE CHRUCH PEOPLE ARE SO NICE TO KYLE HE FEELS LIKE HE IS AT HOME WHEN HE IS AROUND ALL THIS PEOPLE. AT CHURCH WE HAVE A GROUP OF KIDS LIKE KYLE AND HE HAS MEET ALOT OF KIDS AND YOUNG PEOPEL AND WE ARE HAVEING A COOK-OUT THE MONTH FOR THEM.
SO PLEACE KEEP PRAYING FOR KYLE BECAUSE HE NEEDS THIS AND SO DOES HIS MOTHER AND FATHER.
KYLE BROWN
P.O.BOX 1782
DENVER NC 28037
AND KYLE HAS ONLY 13 DAYS TO HIS BIG BIRTHDAY PARTY SO KEEP THAT IN MIND KYLE SAID AND HOPE THAT CAN DROP A CARD FOR HIM IN THE MAIL KYLE LOVES GETTING MAIL LIKE ALL KIDS DO.
WILL TAKE CARE AND HOPE YOU HAVE A GOOD WEEK AND PLEASE COME IN A SIGN KYLE'S GUEST BOOK AND PLEACE COME BACK SOON. THIS LITTLE THING MAKES KYLE SO HAPPY. AND KEEP THE WEBSITE KIDS IN YOUR PARYS TO.
Saturday, July 31, 2004 3:01 PM CDT
Hello this is crystal kyle's mom i was updateing his page for him because he cannot wright this much no more. Please he hard are getting very weak at this time. Kyle sleep study we ok and we are going to put him on a Bi-pap because the c-pap was not working for kyle. The bi-pap will help kyle out alot more. Last week the lady called me to ask if kyle had his bi-papand i said no. So it is coming this week because kyle needs it very much so for his brathing and with his weak heart and lungs this will hope with his heart to because when you get the rest you need it will help you here to. So we have a app with the sleep doctor on Aug 20 to check on kyle. Ands he has a App with the MDA office in Sep and we are going to talk with them more about kyle's needs. And kyle had a app with his Asthma and Allergy Specialists in October for a check up. Poor guy has a doctor for every part of him body. He has a app with his heart doctor in Aug have to call to make a app. I wiil put that up soon. That is all about kyle's doctor app.
I was going to tell you all that we are having a Baptisim for Kyle on Aug 15 at the lake that is the 1 time this chuch had one at the lake. Will kyle cannot fit it the church poor because of his back with the rod and wines in his back so we are have it at the lake this is so nice of them to do this for kyle. The people at our church are very loveing careing people and loves kyle alot. We have a group for this kids like kyle at chuch to kyle likes it very much we have aboout 15 kids in that group now and hope for more soon. And kyle had a very good time with the Bible school a few week back and he loved working with the small kids and he was tried every day after running after them all week and the lady over the bible school asked kyle would he like to him with the kids next year to kyle said yes he would love to. Maked a kinds of cool things.
That best thing is hat kyle is feeling alot better today and hope it will be like is for mon's we are praying that kyle keeps feeling better every day. And i was going to
Thank you all for sending kyle this b-day cards he loves this very much and if you could see his face every time he opens a card he has the biges smile all over his sweet face and please keep them comeing in for kyle.
And a big thanks to Kathy she is working on getting a laptop for kyle and on the wish list with one of his site he is wish for laptop. Because this will help kyle out alot with his classroom and homework to and this he can take to every class with him because kyle can only wright for a very short time before he gets to tried. And when kyle gets tried it will take a long time to get back up to speed on
things. And kyle will be in high school last year this is a very big step for kyle are will you all pray that kyle will do good. We had a meeting with his teachers> Last thursday and a meeting on Monday Aug 2 to talk with them more about kyle's needs hopw this will go good. Because kyle has get more weaker over the summer and alot of kyle's needs have chaged.
WILL HOPE THAT YOU COME IN A CHECK UP ON KYLE ALL THE TIME WE LOVE READING ABOUT YOU GUYS AND THIS THEW THIS SITE KYLE HAD MEAT ALOT OF VERY NICE PEOPLE.
AND WILL YOU PLEASE KEEP PRAYING FOR KYLE PLEASE BECAUSE HE NEEDS THIS VERY MUCH WITH HIM GETTING WEAKER WITH HIS HEART AND LUNGS.
AND KYLE IS LOOKING FOR HIS BIG B-DAY PARRY HE IS MAKEING A LIST OF ALL THE FEED THAT HE WAS WITH HIS CAKE AND IT IS COMING TO BE A LONG LIST. THAT IS SO FUNNY WHEN KYLE HAS HIS LIST WHEN WE GO SHOPPING FOR IT PEOPLE TELL KYLE THAT IS A WAY DO DO IT.
WILL KEEP THE CARDS COMEING IN AND KEEP SIGNING KYLE GUEST BOOK SO KYLE CAN KEEP UP WITH ALL HIS NEW FRIENDS.
KYLE BROWN
P.O Box 1782
Denver NC 28037
brownsuperstar89@aol.com
wheelchairkid200@aol.com
THANK YOU ALL WHO COMES IN A SIGN THE GUEST BOOK BEST OF ALL.
Thursday, July 8, 2004 8:04 PM CDT
Yes this is crystal mom i was updateing kyle's page for kyle he cannot type that much because he will get to tried and so that is why i am doing this for kyle. Kyle had his sleep test last night July 7. And it went very well he sleep for about 4 hours and the doctor who was doing this test said that was ok to stop the sleep test so we did at 4:30am and come home. Kyle was on a c-pap and it was not work for kyle it was makeing kyle more sicker because of his weak heart and lungs. So last night we put kyle on a bi-pap to see if this will work better for kyle. And we have a app with the doctors to talk about the test. On July 23 to see how the test come out. And the MDA doctors said that kyle is getting weaker and weaker and so is his heart and lungs because of his Duchenne MD and we are going back for a MDA app in Sep to talk with them about kyle's lungs and heart the poor guy is on 5 heart meds now and it is getting weaker it looks like with all this meds one would keep kyle heart from getting weaker. But kyle can be on 100 meds and he will still get weaker that is so sad to here that come from a doctor. Becuase kyle is my only child and i hate to see kyle like this but i do not let kyle see me like this because he tells me mommy i will be ok so stop crying. But when he come up and tell me that he hate having Duchenne MD and why can i not be like all the kids. I wish i kind take it away from you if i could. But kyle know what is going to take place when he gets older because he asked me if he was going to see god one day and i say we all will baby one day and he said that he will see his gradfather again and kyle said that would be good when i get to see my gradfather again kyle loved him so much and he passed away in March 2000. It is so hard setting back looking at you baby talking about that and wish one day he could drive a car or dance again and dance at his high school prome. Kyle said to me that when he goes with god he will not need his wheelchair no more because he would be running and playing like he wish he could do here on eather so is said that is rigth my son you will be doing all off that with your gradfather beside you. Kyle is going to bible school with his little custin who is 8 and 4 kyle is going to help with them and he was happy about that the 1 day will be on Monday
And the 1 day of school is Aug 3 only 3 more weeks for that and kyle will be going to high school hope that this year will be a good one and i wish that you all will pray for kyle.
AND THAT KYLE"S B-DAY IS COMING UP VERY SOON AND I WAS ASKING CAN YOU PLEASE PLEASE DROP A CARD IN THE MAIL FOR KYLE BECAUSE HE NEEDS TO BE VERY HAPPY ON HIS BIG DAY HE WILL BE 15 YEARS OLD.
AUG 23 IS KYLE'S BIG DAY WE ARE GOING TO HAVE A BIG PARTY LIKE WE DO EVERY YEAR BUT THINK THIS ONE WILL BE THE BIGGEST ONE FOR KYLE ALOT OF HIS FRIENDS AND FAMILY ARE COMING TO THIS PARTY WE WILL HAVE A LARGE PARTY.
AND COME SEE KYLE ON THIS SITE THAT HE IS ON PEOPLE WHO MAKE KYLE FEEL VERY SPECIAL WITH ALL THE CARDS AND GIFTS. KYLE FACE HAS A VERY BIG SMILE EVERY TIME WE GO CHECK HIS POST OFFICE BOX. AND AND THANK YOU SO MUCH IN MAKING MY KYLE FEEL LOVED.
KYLE BROWN
PO.BOX 1782
DENVER NC 28037
YOU CAN E-MAIL ME AT
brownsuperstar89@aol.com
Kyle's e-mail is
wheelchairkid200@aol.com
THANK YOU FOR COME IN AND CHECKING UP ON KYLE AND THANK YOU FOR SIGING KYLE GUESTBOOK AND PLEASE COME BACK.
Monday, June 28, 2004 9:32 PM CDT
This is Crystal kyle's mom. I am updating kyle's page for him. All kle's doctors app's went good. But kyle's lungs are getting weaker because of kyle's Duchenne MD and so is kyle's heart is enlarged and is getting weaker beacuse of kyle's DMD and with his age too. But kyle's pule and BP is back down the right level that is good news. And kyle has a app for a check up on July 9 to check kyle out. And about the C-pap problem i have called to set up a app to talk with them about the problems that kyle is having with the
c-pap. The doctor's at the MDA Office said that kyle's lungs are to weak for that and it would be best to put kyle on a bi-pap with a vent if he needs it. And hope to here back from them this week. Will we took kyle to the beach to get away from all the doctor and people who come and see kyle. Will daddy had to a job to do at the beach so me and kyle we and had a very good time we all need this time away. Daddy works all the time and this was a way that me and kyle can see daddy. He worked on Thursday and Friday. And daddy had Saturday and Sunday we me and kyle. Me and kyle went shopping and running all over the beach that was so much fun. And we find a wheelchair that was made for the beach and and water this was the 1 time that kyle has beening on the beach in about 6 years because we had no way to get kyle on the beach but with his speacil wheelchair we can now do this for kyle. Kyle had so much fun on the beach i was crying when kyle was saying mommy can i get one of this wheelchair so that we can stat comeing back i love it mommy me and daddy was crying because kyle had a very big smile on his face and if you have saw his face you all would be crying to. The room we had was when kyle can see the beach and kyle loved it very much he was looking at the people and the ocean that make kyle so happy. I said to kyle to i wish we could get one for to baby but the wheelcahir's are 1000.00 and we donot have the money with daddy the only one working in this family. So if someone know how we can get the help will you please e-mail me at brownsupertstat89@aol.com because kyle is wish and hopeing for one and i hate to break his heart by telling him that we can not come up with the money to get one. I hate to ask for help but his is all for kyle and i love to see kyle this happy all the time because who know if we will have kyle next year with all his heart problems and breathing problems. So if someone can help please do this for kyle.
www.makeachildsmile.com
www.hugsandhope.org
And thank you for all the nice people who has sent kyle all the cards and things for him.
Kyle Brown
P.O Box 1782
Denver NC 28037
Kyle's B-day is Aug 23
please make kyle happy and send him a cards
Tuesday, June 22, 2004 5:32 PM CDT
Hello this is mom i am updating kyle's page. Last friday with his breathing doctor the doctor said that kyle lungs are weaker because of his DMD and with his age to. The doctor did some more x-ray to look at kyle lungs. And kyle is feeling alot better that is a good thing. But his has a heart doctor in july to check on his meds. And the one too. But we are going to talk more with the doctor who put kyle on the C-pap. Because the doctor at the MDA office said that kyle is getting to weaker for a cpap and that he needs to talk with him to see about the bi-pap. But the Cpap will be ok for a few more weeks to we have that app with them.
Yes kyle is haveing a very good summer home with mom and we go to moves and shopping all the time. With the money that he got for his report he get ome new games for this playstation2 and gamecube game he loves football game and raceing game he like #6 and #12 and #88 kyle is a ford man kyle said. We went over to see one of kyle's friends he has suy on his noce because his nose was closeing up on him and could not breath out of his nose. He is going very well.
and his blood P is back to a good level and so is his Pules is to back down to 80. The doctor are happy about that.
Kyle is going to have a very big b-day party with about 60 people. Will kyle said that more but we will have to if all of them come right. And we have the date that we are talking kyle to the beach we are going over kyle b-day. We are going on Aug 22th and come back on Aug 30th.
When daddy works is going to let us stall in his house for free for kyle b-day that was so nice of him to to that for us.
AND WE THANK ALL THE NICE PEOPLE WHO SEND KYLE THINGS IN MAIL AND BY E-MAIL. KYLE LOVES GETTING THINGS AND IT MAKES KYLE SO HAPPY AND I LOVE SEE A SMILE ON HIS FACE ALL THE TIME. AND HOPE THAT THE PACKAGES AND CARDS KEEP COMING IN BECAUSE KYLE NEEDS THIS VERY MUCH IN HIS LIFE.
SO PLEASE OVER AND SIGN KYLE GUEST BOOK HOPE TO HAVE MORE PRICTURE SOON. AND COME SEE KYLE ON THIS SITE WHEN ALL THE PEOPLE SEND THINGS TO KYLE. AND WILL YOU KEEP PRAYING FOR KYLE. WE NEEDS THIS.
www.Makeachildsmile.com
www.Tumbleweedfoundation.com
www.sendingourlove.org
http://childrenofpromise.net/kyleb.html
Kyle Brown
P.O Box 1782
Denver NC 28037
Monday, June 14, 2004 8:47 PM CDT
Hello this is mom. I was updateing you about kyle. Yes kyle is feeling alot better and his meds is work a little bet and his Pule and Blood P is going back down it is 114/75 and pule is 87 that is very good the doctor said to keep an check for a few more days and will see him back in July for a check up. This friday kyle has a app with his breathing doctor to check out his lungs.I was going to tell you all the the Month of August is Muscular Dystrophy Awarenesss month can you please take a few mins to pray for all this kids. Yes we are going to take kyle to the beach for his b-day. Kyle is so happy that daddy can take the week off. To be with him I will update off kyle app on friday to tell all about how the app went. I took kyle to see the movie Garfield and we had a very good time and went out to dinner to the bast day of my life. Yes kyle get his report card and he get all A's and B's. And i had to give him $85.00.
$10.00 for all the A's and $5.00 for all the B's. And i was going to tell all the people that sent kyle cards and packages in the mail this is makes kyle so happy.
Kyle is looking for going back to school a little but he is looking for going to hight school. But i am not my baby is going to 15 years old August 23th. We are going to have him a very big party for kyle and i will take alot of picture and will be them up on his page. That is all for now will update after kyle app.
AND THNAKS TO ALL THE PEOPLE THAT SEND THINGS TO KYLE THIS IS SO SWEET OF YOU ALL AND HOPE THEY WILL KEEP COMEING IN FOR KYLE YOU DO NOT KNOW HOW THIS MAKES KYLE SO HAPPY. AND THANK GOD FOR PEOPLE LIKE YOU ALL THAT CARE ABOUT ALL THIS KIDS THAT NEEDS AND THE CARE AND PRAYS.
YOu can come and see kyle on this site that he is on.
www.Makeachildsmile.com
www.Tumbleweedfoundation.com
www.Sendingourlove.org
http://childrenofpromise.net/kyleb.html
keep the cards and package coming in for kyle and keep parying for him to.
Kyle Brown
P.O Box 1782
Denver NC 28037
Saturday, June 5, 2004 6:59 PM CDT
Hello this is crystal kyle's mom i am updateing about kyle's doctor app this friday. The did alot of test and said that yes kyle herat is enlarged and that kyle's getting weaker every day. It is comeing from his Duchenne MD and his B/P was 145/95 that is to high for a child kyle's age and that his pulse was 120 that is to high to so he give kyle a new meds to see it will help lower his BP and Pulse and that i have to check it 3 times a day keep a eye on his breathing and i will call his doctor back this week so that we can see if we need a new plan for kyle's heart problems. It is so hard to set and here the doctor telling you that your baby is getting weaker and wearker every day with his Duchenne MD. So is about the doctor app on friday and he will go back July 2 to see if the news meds is working or not. Kyle had a app with his breathing doctor about his lungs problems on June 18. We need to talk more about the Cpap at that time. And his a app with his MDA doctors in Sep 16. That is all about the sad new that is time. Kyle last a good friend he had Duchenne MD and he was 15 year old. And kyle asked me the a hard quition last night it was mommy am i going to make it to my 15 b-day. And i said what are you asking me if you are going to god like Jason and he said yes. Because Jason didnot get to have a b-day this year. I set and cryed for about a hour and i said that i hope that you have alot of b-day. But who know that we will be here next year. So that is a heard to talk with your teenger about dead. Kyle has been down and and asking can you who read his page will you all pray for kyle and for his family we all need this. And to all the nice people that who sent kyle cards and little gifts that make kyle so happy to have people thaking about him.
Will you all keep praying for kyle and for us his family .
And please keep sending kyle the cards and little giifs because kyle loves getting thing in mail so please can you do this.
Kyle Brown
P.O Box 1782
Denver NC 28037
And thanks to all the people who come in a signs kyle guest book and you know who you are.
WE ARE GOING TO TAKE KYLE TO THE BEACH AFTER FATHER DAY FOR A WEEK AND HE IS LOOK FOR IT HE SAID THAT HE NEED THIS VERY MUCH GET AWAY FORM ALL THE DOCTOR.
Sunday, May 30, 2004 3:49 PM CDT
Yes this is crystal kyle's mom i was updateing kyle's page.
kyle has 3 doctor app 2 this week and one next week.
Kyle is stall having the problems with his lungs and now we have to go see his heart doctor because the x-ray looked like kyle heart is enlarged and he is having alot of breathing problems to so we are going to that doctor this week to for a check up. And kyle has beening down for a few week after his was sick. The MDA doctor said that it could be comeing from the cpap and that he will chage it to a bi-pap he said this would be the best for kyle but we will have to want to see after his doctor app this week to find out about all kyle problems that he is having. Had to chage his heart meds to see how that will would he will see his heart doctor on friday. But one good thing kyle is out of school and like beening home will me and his dogs. But this is not going to be to good with all the doctors app. But kyle's family doctor was calling all kyle's doctors last week to make a app with all of them for us. And now the doctors are likeing at his heart more. But i hope that he will be ok. will need to go check on kyle. and keep kyle in your prays becuase kyle needs that in his live.
That would very nice if you can drop in and sign kyle guest book on drop kyle a card in the mail. Because he loves getting mail it make kyle happy and we need this for him.
Kyle Brown
P.O Box 1782
Denver NC 28037
or come and see him on the sites.
Will kyle beening on the site he is more happyer i thank because people send kyle cards and little things in the mail and hope that you nice people will keep that up as long as kyle is alive.
Tuesday, May 25, 2004 8:11 PM CDT
Hi
I was updateing kyle page kyle is doing very well this week but is stall having problems with his lungs so next week we are going to see his heart doctor and breathing doctor for a check up. Hope it will be good news because kyle needs this so much. Kyle said that he is feeling better every day and he is more like hiself that is a good step for him. We went to my sister son graduation on Saturday kyle had a very good time he had a few friends that was in that class to. Will keep kyle in your prays. This will get ous thow all the hard times and kyle will love to here from you all.
Please send cards to make kyle feel better he loves reading them all. will hope to here from all of you again.
Here is kyle Brown
P.O Box 1782
Denver NC 28037
www.hugsandhope.org
Thursday, May 20, 2004 12:38 AM CDT
Hello this is crystal kyle's mom. Kyle is feeling a little every day. Kyle was at the doctor on friday and Monday and Wed of this week. Kyle right lung is not working that good no more and he had 2 sets of x-ray done this week and last week. But the best thing it is not Pneumonia. But kyle has not beening running a high fever and sick but he is very tried all the time and has not beening eat that good to. So kyle doctor called me last night to tell me about the x-ray's was all ok. But the doctor said that kyle's heart was in larged and for us to make kyle a app with his heart doctor and with his breathing doctor. He can tell us more aabout this i hope. The doctor said that kyle's oxygen level is good it is 98. Kyle said hi to you all and hope that you are all doing good who comes in a reads about kyle. Kyle is a very specail young man and all the people who has send kyle gift and cards you are like little angels looking over kyle and that make kyle happy.
AND CAN YOU ALL PRAY FOR KYLE HE NEEDS IT NOW AND THAT WILL MAKE KYLE FILL LOVED.
KYLE BROWN
P.O BOX 1782
DENVER NC 28037
E-MAIL KYLE AT www.wheelchairkid200@aol.com
so please come bye and sign my guest book to
Will take care and i will update soon about kyle problems.
Sunday, May 16, 2004 4:17 PM CDT
Yes this is crystal kyle's mom i was updateing kyle's page he is having problems with his lungs and we was at the doctor's on friday and the doctor did some x-ray to see if kyle had Pneumonia but the x-ray come back ok thank god for that good news. Kyle has a fever and has a bad cold today and coughing alot and give kyle 3 news meds for this problems. Kyle lungs are not filling up with air and not working good. Kyle has to go back on Monday for a check -up to see if the meds is working. But kyle's doctor was talking about if kyle is not feeling better bye monday he be put in the Hospital i hope not because this is the last week of school for summer. kyle would miss alot of cool things this week at school. So kyle needs a like smile on his face so if you can pray for kyle and that will make kyle feel a litte better and me to i hate see you sick it make me so sad. And about kyle's IEP Meeting at school for next year went ok i hope so the teacher will meet with us about all kyle's class and the aide that kyle will need for high school but we will have to see about this problem I will put something up about kyle doctor app on his page after Monday night about kyle day.
Will you can send kyle some happy mail or e-cards that will make kyle so happy his wheelchairkid200@aol.com
Kyle Brown
P.O Box 1782
Denver nc 28037
Wednesday, April 28, 2004 3:58 PM CDT
Hi this is Crystal Kyle's mom. Will kyle is doing very well and that is good for him. We got good news from kyle's breading doctor said that it was lookg very good but we need to keep a eye on kyle's oxgyen level because it went down in the 70's and the doctor does not wont it down that low. But kyle is ok with all of that the doctor is going to send kyle a oxygen machine so i can do that at home not in the hospital kyle liked that very much. Kyle said hi and to tell you that he has only 16 days of school to the big summer break kyle is asking to go to the beach for a few weeks i hope that we can take him. Kyle loves the beach very much. This will be the best thing for kyle. We are working on going around Kyle's B-day in August. So it is me and kyle and the dogs over the summer break. Kyle's baby Max has beening not feeling to good but we take him to the vet and give him some meds and the meds is working very well and now he is back and playing and running around with lady again. Kyle takes max and lady for walks all the time the dogs loves that time with me and kyle. Kyle has no doctor to Sep kyle said that was a cool thing. Poor kyle has a doctor for every part of his body. And we are having a IEP Meeting for kyle to talk about his classes and all his needs for high school. But if someone know something about IEP for kids with specail needs like kyle please e-mail me ok. We are having problems with them now because kyle needs a aide for school but the people are telling me and larry that kyle can not get one for next year so we arre have a meeing on Firday to talk with them about why kyle needs a aide all day i had kyle's doctor's to wright a letter for me. Telling them about all kyle's needs and thing that needs to be done for kyle at school. so if someone can me out with this please e-mail me.
And kyle is stall happy to get the happy mail for all the nice people for all the site that we have kyle on.
Kyle is new on this site
www.Tumbleweedfoundation.com this are very nice people that loves this kids very much we have meet so many new people thew all this site i know kyle loves hering from all of you guys to. Will if you woould like to send kyle some happy mail you can go at this address.
Kyle Brown
P.O Box 1782
Denver NC 28037
I loveing see kyle face whne he opens all the mail be for a few week the mail is cut in half and kyle was asking why is he not getting mail did the people last his address and said that is will start coming in again so please if you have the time drop kyle a card for him.
I know the RECkids.org are going to send kyle some tickets to the zoo for this summer kyle loves the zoo.
will need to go for now so to all the people that come in a signs kyle's guest book may god bless you all.
WWW.Makeachildsmile.com
www.hugsandhope.com
www.sendingourlove.com
So keep kyle in your thoughs i would love thay very much
Wednesday, April 7, 2004 7:54 PM CDT
Hello all you nice people who come bye and check out kyle web site we like reading all the nice things that people in the guest book. Will kyle is doing very well and feeling better very days that is good. Do you know that is is only 28 days to the end of the school year for kyle he is liking that alot. We are working on getting kyle his new computer to take with him to school next he will be in the 9th grade and in high school i am not looking for that. But kyle is a little he will have some cousin in that school with him that is good. ok that is that and he is doing good with his Duchenn's MD but he is geting weater every day he cannot do the much his staff because of his arms will not working for him that good but he can wright a little put with this new laptop it will make it easter for him at school. Kyle has a doctor app on April 16th with his breathing doctor about his C-pap to check it out and see if it is working will with kyle and he had a app with all his doctor at the MDA Center this doctor keeps a eye on his Duchenn's MD and kyle likes them very much he has beeing going for 10years now that is long time kyle was tell me why i was wright this Journal kyle likes to help me with his. Will it is all about him so he has a right to do that. Kyle is here beside me right now and he like to draw a little he loves to draw
crosses that is a good things to draw right. kyle that he was happy to be going to the school that his cousin goes to he play football for the school he is 17 year old and it will be his last year for school. We are have some good weather today it was in the 70's today and sunny kyle loves days like this because he can go out side in his wheelchair that make kyle happy and we take the dogs for a long walk today. Kyle loves this and so do i love beeing with kyle all the time. But kyle said that he would like to have time away form me you know that teen things i thank but he said that he loves me all the time that make me very happy to here when i have a down day. will i take i will go for now and hope to see you all here soon.
So keep praying for kyle he needs that so much and you can keep sending kyle cards to kyle goes to his mail every day a checking for cards i know kyle has not get a card in a few days that was makeing kyle a little down but i said keep his head up and will get more some.
Kyle Brown
P.O Box 1782
Denver NC 28037
You can get kyle on in this sites that i have him on
www.hugsandhope.com
www.cagedkids.org
www. make a child smite
and one day hope to have kyle on more i know kyle has beening very happy this days after i get him on this sites he loves getting the cards and things in the mai.
kyle has meeting so many people over the few mouth that he has beeing on the site i know kyle was a little upset to here that Robyn had passed awya kyle sent her. Her last b-day box to her will we are parying for her family in thew time of need.
Friday, April 2, 2004 9:00 PM CST
Hi this is Crystal kyle's mom we are back on line now the PC is working ok now i have no idea how long will kyle is doing ok now and thank you for keep signing kyle guest book thank to a good friend she make a copy and sent it to him all the time. you can see kyle on his site and the site that he is on for the kids like kyle.
you can send cards and things to kyle at
kyle brown
P.O Box 1782
Denver NC 28037
Friday, April 2, 2004 9:00 PM CST
Hi this is Crystal kyle's mom we are back on line now the PC is working ok now i have no idea how long will kyle is doing ok now and thank you for keep signing kyle guest book thank to a good friend she make a copy and sent it to him all the time. you can see kyle on his site and the site that he is on for the kids like kyle.
you can send cards and things to kyle at
kyle brown
P.O Box 1782
Denver NC 28037
Tuesday, March 30, 2004 6:08 PM CST
Hello to ALL of Kyle's visitors! :)
Kyle's Mom, Crystal, asked me to update Kyle's page here. They are having problems with their PC at this time. They cannot access his webpage or his guestbook. They CAN receive emails, but NOT e-cards. But, PLEASE continue to sign in the guestbook, for I have been printing the pages out for Kyle and mailing them to him to keep him updated on his page. And, of course, you can also email them at
brownsuperstar89@aol.com
Kyle LOVES hearing from ALL of you!!! :)
Kyle is feeling better and is doing well at this time.
Thank you for caring about Kyle - he and his Mom are terrific people and I am blessed to have come to know them through my little "corner" of the internet world.
Eileen
www.caringbridge.org/il/ej
Thursday, February 26, 2004 8:07 PM CST
Hi nice people who come by and checking on kyle. This mom Crystal kyle is doing very well now that is a very good thing kyle needs this days. Kyle breathing doctor said that kyle was doing good and kyle has to go back in 6 mon. And has a heart doctor in April for a EKG and all the test that goes with his app. Kyle said hi and that it is snowing here today school got out at 10:00 today and not school for friday. will daddy get a jeep this week and kyle loves it very much hope to get kyle in it soon after all the snow is not here no more we get about 6 in now and calling for more tonight. I was going to ask if you guys now where i can get kyle laptop he need one to do his school work on and home work on and so that he can talk with his friends because we can put the laptop on his tray for him to type because he is geting very weak with his Duchenne's MD this would make kyle very happy he needs to be happy all the time because i hate seeing kyle down and crying about all of the things that is going on with kyle. So if someone one can help me with geting kyle a laptop that will help. Kyle said that he would love you so much if you could help us out on his need for kyle. Kyle get the paper for the MDA camp and i will mail it back to them this week. I help that kyle will get in this year becauase kyle is looking for this. Will i help to update kyle's page every few weeks will need to run i need to take care of kyle. Hope to see you all in kyle guest book. Kyle said hi and thank you all who come in and checks up on kyle all the time this makes kyle happy to read all the people who come in. and to all the hugs and hope people who sends kyle all the cards and all the people from all the site that kyle is on i know kyle need to be a happy 14 year old boy.
You can send kyle happy mail to his address
Kyle Brown
P.O Box 782
Denver NC 28037
or you can see you on this site that he is on
www.makeachildsmile.com
www.hugsandhope.com
that is some of them
or you can e-mail kyle at his site
wheelchairkid200@aol.com
THANK YOU TO ALL THE NICE PEOPLE HERE
Tuesday, February 17, 2004 4:10 PM CST
Hello this is Crystal kyle's mom. Will i was update all kyle's pages today. Kyle said hi. Kyle is doing very well right now that is a good thing with all kyle goes thew every day. Kyle has a doctor app this friday with his breathig doctor hope this app will go good we need all the good new that we can get now days. I know kyle is coming down with a bad cold now hope it does to trun into pnemonia. Because of his Duchenne's MD it can trun very fast into something bad. Will kyle is hopeing to go to the MDA summer camp this year he has not beening in a few year because of his back suy. But this year he is looking to go and have fun kyle needs this very much and all the people that help with this kids are very good and does all for them. I know i was going to tell you all that kyle has beening down for a few weeks now and all who read's this can you please plase plase hwlp me make kyle happy he need tis very bad. If you can send kyle cards and things like that. Will need to run now will be back soon for a new update on kyle. I know kyle needs this in his live.
You can send kyle cards and things like to his address
Kyle Brown
P.O BOX 1782
Denver NC 28037
You can see kyle on this site
www.makeachildsmile.com
www.hugsandhope.com
www.cagedkids.com
And kyle will be on this new one in March
www.Tumbleweed foundation
Kyle needs this all to make him happy and thank you al who stop bye and signed kyle guestbook and looking at his picture
Thursday, February 5, 2004 7:43 PM CST
Hi People,
this is crystal kyle's mom. I was telling you guys that kyle is doing very well and he is looking for a week. At the 2004 MDA Summer Camp this year he has not beeing in a few year but he is going back this year. It is in Bethelwoods camp in South Carolina this year. Kyle is looking for a fun time away from mom and dad for a week
Aug 8th -Aug 13th.
you can mail kyle some happy mail at his address
Kyle Brown
P.O Box 1782
Denver N.C 28037
you can see kyle story on this site if you would like to
www.hugsandhope.com
www.makeachildsmile.com
Hope to get kyle on this new one to in a few weeks to this is a new site and you can check it out.
http://www.tumbleweedfoundation.com
And to all the people that comes by and signing kyle guest book. Will take care and god bless you all who cme in.
Tuesday, January 27, 2004 10:36 PM CST
Hello
This is a little about kyle.
So he i go.
KYLE WA BORN IN DENVER,NC IN AUG 23 1989.I'LL ALWAYS REMEMBER THE DAY THAT KYLE WAS BORN. WE HAD A PERFECT LITTLE BOY. LIKE ALL BABIES KYLE LOOKED VERY HEALTHY. HE SAT UP LIKE BABIES HIS AGE AND WALKED A ABOUT 1 YEAR OLD.
AT ABOUT 2 YEARS OLD, KYLE WAS GETTING TRIED ANS WAS ASKING A PIGGYBACK RIDE IF WE WENT ON LONG TRIPS LIKE THE ZOO, ECT. HE WAS HAVING PROBLEMS GEETING OFF THRN THE FLOOR AND HAVING PROBLEMS RUNNING AND PLAYING LIKE THE KIDS HIS AGE. kYLE WAS 3 YEARS OLD WHEN HE FELL DOWN AND BROKE HIS LEG AND HURT HIS HIP. IT TOOK A LONG TIME TO GET BETTER.
kYLE WAS 4 YEARS OLD WHEN I TOOK HIM TO AN OPTHOPEDIC DOCTOR ANS WAS TALKING TO HIM ASKING ASKING WHY KYLE'S LEG AND HIP WERE NOT GETTING BETTER AND HE SAID FOR KYLE TO GET ON THE FLOOR AND SEE HOW HE WAS GETTNG UP FROM THE FLOOR.THAT WAS WHEN THE DOCTOR SAID THAT HE WOULD TAKE A TEST FOR DUCHENNE'S MUSCULAR DYSTROPHY BECAUSE OF THE WAY KYLE WAS HAVING TO PULL HIMSELF UP ON A CHAIR OR SOMETHING.
SO WITHIN A WEEK AFTER THAT APPONINTMENT THE DOCTOR CALLED AND SAID THAT HE NEEDED ME TO COME TO THE OFFICE SO THAT HE COULD TALK TO ME ABOUT THE TESTS. HE SAIS I HAVE SOME BAD NEWS. THE DOCTOR SAID THAT KYLE HAD DUCHENN'S MD AND THAT WE NEED ED TO MAKE A APPOINTMENT WITH THE MUSCULSR DYSTROPHY OFFICE IN CHARLOTTE. SO IN DECEMBER WE HAD A THE APP WITH THE MDA DOCTOR'S AND WE TALKED TO THEM A LONG TIME ABOUT DMD AND HAD TO DO A LOT OF BLOOD WORK ON KYLE.
ABOUT A YEAR LATER THE DOCTOR SAID THAT KYLE NEEDED TO GET AFO LEG AND ANKLE BRACES THAT WOULD HELP KYLE WALK A LITTLE BIR BETTER, SO WE DID. WE STARED HIM IN PHYSICAL THRAPY FOR A FEW YEARS. KYLE WAS IN AND OUT OF DOCTOR OFFICE UNTIL HE WS 5 1/2. THAT WAS WHEN KYLE STARTED SEEING AN ORTHOPEDIC DOCTOR AND A HEART DOCTOR TOO. DOCTOR SAID TO KEEP A EYE ON HIS HEART BECAUSE WITH DUCHENNE'S MD IT MAKES THE HEART WEAKER AS TH CHILD GETS OLDER. SO WE WENT FOR A CHECK UP ONCE A YEAR AN THE DOCTOR SAID THAT HE WAS LOOKING GOOD AND TO COME BACK IN A YEAR. AT 6 YEARS OLD WHEN KYLE WAS HAVING DIFFICULTY WALKING LONG AND GETTING VER TRIED THAT WAS WHEN ER GOT HIS FIRST WHEELCHAIR. HE WAS IN TE SECOND GRADE AND THIRD WENT VERY WELL FOR HIM WHEN KYLE WAS 8 YEARS OLD THE PROBLEMS BECAME MORE AND MORE DIFFICULT. IN 1998 HE HAD TO GO THROUGH AN OPERATION ON HIS FEET AND ANKLES TO LENGTHEN THE TENDONS SO THAT HE FEET WOULD BE FLAT AND SO THAT KYLE WOULD NOT HAVE TO WALK ON HIS TIPTOES. KYLE HADT DO PT TO HELP HIM WALK A LITTLE LONGER, BUT SHORLTY AFTER THAT WAS WHEN KYLE STOPPED WALKING . BY 9 YEARS OLD KYLE WAS IN A WHEELCAIR MOSTY OF THE TIME.
AT 10 YEARS OLD HIS OTHOPEDIC DOCTOR SAID THAT WE NEED TO TALK ABOUT THE SPINAL FUSTION AND WE TALKED ABOUT IT FOR ABOUT A YEAR BEFORE WE HAD THE OPERATION.AT THAT TIME THE X-RAY SAID THAT KYLE'S SCOLIOSIS WAS AT 28 DEGREES. KYLE WAS IN A LOT OF PAIN WITH HIS BAK ALL THE TIME.WHEN WENT BACK FOR A YEAR CHECK UPIT WAS AT 33 DEGREES AN THE DOCTOR SAID THAT WAS A GOOD TIME TO HAVE THE SPINAL FUSION. SO WE HAD THE OPERTION ON SEPTEMBER 20,2000. IT TOOK ABOUT 9 HOUR TO DO IT AND THE DOCTOR COME OUT AND SAID THAT KYLE DID VERY WELL AND WE WWOULD TAKE HIM TO THE PICU OVER NIGHT AND THEN MOVE HIM TO A REGULAR ROOM. THAY PUT A ROD IN HIS BACK FROM HIS HEAD TO HIS BUTT AND ACROSS HIS HIPS. KYLE WAS IN THE HOSPITAL FOR 2 WEEK AFTER THE SURGERY. HE HAD PROBLEMS WITH HIS STOMACH AND HAD TO GET A NG TUBE IN HIS NOSE.KYLE GOT BETTER AND WE TOOK HIM HOME.ABOUT 1 WEEK LATER KYLE WAS GETTING SICK WITH A HIGH FEVER AND THE DOCTOR SAID TO TAKE KYLE TO THE ER.THE DOCTOR PUT KYLE BACK IN THE HOSPITAL SO THAT HE COULD LOOK AT HIS BACK.KYLE WENT BACK TO THE OPERATING ROOM AND TH DOCTOR CAME TO TAK WITH ME AND DADDY AND SAID THAT KYLE HAD A DEEP WOUND INFECTION DOWN TO THE HARDWARE.KYLE WAS UNDER GENERAL ANESTHESIA TO HAVE HIS WOUND CLEANED OUT. THE DOCOTE SAID THIS WAS GOING TO BE A LONG HOSPIAL STAY. THEY RAN TESTS TO SEE WHAT KIND OF WOUNF INFRCTION IT WAS AND FOUND OUT IT WAS E-COLI. THEY PUT KYLE ON UNASYN AND VANCOMYCIN THROUGH IV. KYEL WAS DOING GOOD AND THE DOCTOR LET HIM COME WIT THE IV, BUT KYLE WAS HOME FOR ABOUT 3 DAYS AND THE FEVER WENT BACK UP SO BACK TO THE HOSPITAL. THIS TIME KYLE WAS VERY SICK AND ILL AND THE E-COLI WAS NOT GETTING BETTER AND KYLE WAS MOVED TO THE PICU AGAIN. HIS HEART WAS NOT WORKING RIGHT AND HIS KIDNEYS WERE NOT WORKING RIGHT AND ALL THE PROBLEMS WITH HIS BACK TOO.AFTER ALL THESE DAYS IN THEHOSPITAL KYLE HAS BEEN HOME AND HAS NOT BEEN BACK IN THE HOSPITAL FOR 3 YEARS NOW .THAT IS VERY GOOD FOR HIM TO STAY OUT OF THE HOSPITAL. BUT KYLE IS ON 4 HEART MEDS AND 1 KIDNEY MEDS. KYLE STARTED HAVING BRATHING PROBLEMS SO HIS DOCTOR PUT HIM ON A C-PAP MACHINE AT NIGHT TO HELP WITH THAT AND IT IS WORKING VERY WELL FOR HIM.
AND NOW KYLE IS DOING OK AND HIS IS NOT HAVE NO NEW PROBLEMS RIGHT NOW. HE GOING TO HIS HEART EVERY 3 MON'S BACK IN APRIL AND WITH HIS C-PAP EVERY 6 MON'D AND TO THE MDA DOCTOR EVERY 6 MON'S
IF YOU WOULD LIKE TO SEND KYLE SOME HAPPY MAIL HAER IS HIS ADDRESS
KYLE BROWN
P.O BOX 1782
DENVER N.C.28037
AND THANK YOU FOR ALL WHO STOPED IN TO SIGN HIS GUEST BOOK THAT MAKE KYLE VERY HAPPY.
AND YOU CAN SEE KYLE ON THIS SITE
WWW.MAKEACHILDSMILE.COM AND
WWW.HUGSANDHOPE.COM
Tuesday, January 27, 2004 7:35 PM CST
Hello all this is crystal kyle mom. Kyle is doing very good right now and hope that is will stay like this for a few week. Kyle has a doctor app on friday for his bearthing hope that is will be good check up. We are having snow and ice here now.
Thank you to all the nice people who has signed kyle's guest book this is makeing kyle so happy.
If you would like to send kyle some happy mail you can do that this address.
Kyle Brown
P.O Box 1782
Denver N.C 28037
You can read about kyle live on
www.makeachildsmile.com
and he is on
www.hugsandhope.com
And thank you all who sent things to kyle over Christmas and he loves all the cards that you guys are sending to him.
Saturday, January 17, 2004 2:48 PM CST
Hi,
this is Crystal kyle's mom. we are doing good here today. it is a little cold here today.it is in the 40's here. I wa going to tell you all thank you for the cards and the gilfs that kyle get over Christmas kyle loved them very much so and he said all was vey cool. Kyle is doing good right now he had a app with his heart doctor last week and he said that kyle heart has not got no more weaker right now. Kyle has to go back in April for EKG ECHO of his heart. Kyle was asking to to put this up to. That he's class at school is going to the Special Olympics Bowling this year and we all have so much fun kyle went last year and had a ball. I will be going to help with that to. Kyle has a check you with his doctor about kyle's C-pap next week to check it all.
Take care and you can check out kyle's page all you like and thank you for signing kyle's guest book that make's kyle so happy to read all of them.
Here is kyle's Address if you like to send things to kyle he would like to have more friends. Friends make kyle so happy because he about 5 friends at school and all the one's that he make's on line.
Kyle B
P.O Box 1782
Denver N.C 28037
You can see kyle on hugs and hope.com
and Make s child Smile.com to
Take care hugs to all the nice people helping out with this ill kids you are the best.
Friday, January 16, 2004 2:25 PM CST
Here is kyle B
Address
P.O Box 1782
denver nc 28037
Friday, January 16, 2004 2:18 PM CST
Hi all kyle is doing good right now thank god for that.Kyle's heart app with very will last week and hope that he heart will not get know more weaker right now that is why kyle is on his meds. hope to see more of kyle's friends sign his guestbook that make's kyle so happy to read all of the new people to can in a see kyle's picture on him and his pets. Kyle loves his dogs max and lady they make kyle happy and he loves playing with them to. will need to go kyle is asking for something right now . Thank you all for the loving cards and gilfs that you have sent kyle. I love seeing a smile on his face when he open's the things.
mom
Sunday, January 11, 2004 3:08 PM CST
Hi people thank you for come in a signing my book.
Will kyle had a doctor app with his heart doctor and he said that kyle heart was not no more weaker at this time and that was goosd new for us to hear.and kyle so happy to hear that to. kyle cold is going away that is good thing. will need to go for now i will keep you up to date on kyle nad his doctor app to.
Saturday, January 3, 2004 8:32 PM CST
Hi all i was updating this for kyle. Kyle has beening sick with a bad cold. And was at the doctor on friday and the doctor said that kyle will be ok if now i will have to take kyle back on monday. and kyle had a very good x-mas and a very good new year to will i am going back to play with his gamecube with him kyle loves football games.
mom
Saturday, December 13, 2003 4:36 PM CST
HI KYLE AND THE FAMILY ARE DOING GOOD HERE WE ARE ALL WELL AND HOPE THAT WE STAY LIKE THIS. KYLE SAID HI AND THAT HE WISH YOU ALL A MERY CHRISTMAS ANN A NEW YEAR TOO. WILL I WAS UPDATEING KYLE PAGE HERE BUT I HAVE NO NEW NEWS ABOUT KYLE RIGHT NOW BECAUSE HE HAS NOT BEENING SICK AL ALL WILL I AM GOING FOR NOW HOPE THAT YOU ALL TAKE CARE
Wednesday, December 3, 2003 6:11 PM CST
Hi this is from the Brown family. Mom and Dad and kyle i hope that all of you guys will have a good Christmas and new year. Will i need to talk about kyle. Kyle is doing very good here hope it will stay like this for a few week. Because kyle needs this very much. And he is looking fored to Christmas becuase kyle like to have family here. Kyle said hi and thank you all for the nice email's that you have send him. On the Hugs and hugs all the nice people who has made kyle so happy with the mail and gifts that you guys have sent to him over the pass mounth's. Kyle had a friend who had MD that passed away last week she was 22 year's old and a very nice young lady she was. will i need to go for now i hope to have more for you guys soon take care and god bless you all.
Saturday, November 22, 2003 9:19 PM CST
Hi
This is crystal kyle's mom. We are doing very good here kyle has got over that bad cold he had for about 3 week. Kyle said thank you the people who like to read aboout him and kyle is looking for a big dinner for thanksgiveing. We are going to granmother's house.We are going to pick out a x-mas this week and we will have to put up the light's and all x-mas things that goes out side. We have a big thing every x-mas because we don't know if kyle will be here next year. And take care and god bless you all.
Sunday, November 16, 2003 10:27 PM CST
HI guys this is kyle and mom we are doing good here the doctor's. said that kyle cpap is work good for him to and the MDA doctor's are talking on how kyle is doing with his Duchenne MD and we have no more doctor to 2004 Jan 6 that is a good thing but he stay has that cold. But kyle heart doctor said that kyle heart is doing good to we love news like that. well i will go for now i will can back and up date you with all the doctor new.
Tuesday, November 4, 2003 0:18 AM CST
Will this is my again i am doing good but have a cold right now mom sdaid that i will be ok. I had a doctor app last friday about my cpap the doctor's said that i was doing so good with it and have to go back in Nov 12 for a check -up after that app i will have to go bak ever 6 mon that is so good will i need to go have a good day all.
Saturday, October 25, 2003 7:41 PM CDT
Hi
All my doctor app went well this time. The Cpap is helping me out with my breathing. I have a check-up app on Oct31 to see the my doctor about all the things for me. Kyle said hi to all the people who has signed his books here. Kyle school football team won all 7 games this year and are the are the 2003 catawba county champes. Kyle and mom and dad said thank you for reading this page.
Saturday, October 18, 2003 4:01 PM CDT
Hi this is my kyle Brown. I had a very good app on Thursday at the MDA app. The doctor said that i was looking good and have not no weeker at this time. But like we all kyle can get weeker over night. I was so happy for kyle get in a easystander this was the 1 time kyle was up right out of his whhechair in 5 year. I was was so happy to see kyle stand in that easystand and he is about 5ft 6in. WE are going to talk with the MDA to see if we can get one for kyle for home. we didn't make the heart doctor app we will go in November.
Thank you for reading kyle web page and signing has book to
Tuesday, October 14, 2003 8:59 PM CDT
kyle is going to start on his cpap this week. I hope this will help his breathing problems that he is haveing. Kyle said thank you for all the e-mail and mail he is geting thew hugs and hope and about the quilts that the smilequilt has made for him and thank you for adding that to my quilt i know you are very busy and will get it up on my quilt soon. God Bless you all who come to read about little old me.
Saturday, October 4, 2003 7:59 PM CDT
Hi guys and friends.
I had the last sleep study last Thursday night. And the doctor said that i only needed room air no Oxyen we was very happy at that i have a check-up on Octobe 31. And i have a heart doctor app on Oct 17 my heart is arting funny this day i have to take 5 heart med every day. And i like my doc he is cool. And i have a MDA app in about 2 weeks i have a buzy October. Have a good day.
Sunday, September 28, 2003 3:41 PM CDT
Hi my name is Kyle B
I have Duchenne MD and i am in a wheelchair fulltime for about 4 year's now i am in 8 gd at Mill creek Middle school
I am having problems with my breathing i am going to the Hospial for a sleep study this week. It will be over night that is all this time I am going to have to be put on a CPAP for that to. I Have 2 dogs and a frog and a Hermit Crab. I have no sister or brother only my pets.
Sunday, September 28, 2003 3:35 PM CDT
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