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Hey Guys,

It has been a while, but we think of you often, and keep you guys in our thoughts and prayers......(inside joke for Bonnie....Piturbed....)
Mary,John,Charlie and Lauren Andren (Mary Hentges) <andrenmary@yahoo.com>
Apple Valley, MN USA - Sunday, February 5, 2012 4:11 PM CST

Hi Patrick and family,
I found you through Kirkland's website. My daughter, Alexis has Mito also. She hasn't tested positive for any of the strands out there so far, but has complex 1 & 3 deficiency. She has been in and out of the hospital most of her life. She too has a lot of consipation, gas issues. We finally found that peg flakes work the best. I am praying for Patrick that he is feeling better. Take care, Steph & Alexis
www.caringbridge.org/visit/alexisroung
Steph Roung <all4roungs@sympatico.ca>
St. George, ON Canada - Friday, November 23, 2007 10:17 PM CST

Just stopping by to wish you a wonderful Thanksgiving!

Love, MaryBeth & Alex

MaryBeth <attnymb@aol.com>
- Monday, November 19, 2007 7:22 PM CST

I am thinking of you guys and praying. I hope he starts feeling better soon. Love you, Karri
Karri Koepp <karri.koepp@hotmail.com>
Northfield, mn - Tuesday, November 13, 2007 8:20 AM CST

thinking about you guys and hoping that they got Patrick pain under control. We are praying hard for answers!
Love, Rachele and Zach <rlaco2001@yahoo.com>
Jordan, MN - Monday, November 12, 2007 7:26 AM CST

Im so glad you guys were able to make it to Alecs service. He was such a cutee. I loved to see his cute little face on their site. Our thoughts and prayers are with them. You guys are busier than ever like us...just never ends does it. Holidays are coming too quick...where does the time go? Thinking of Patrick and your family. Take Care With Love Debbie
www.caringbridge.org/visit/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, CA USA - Saturday, November 10, 2007 1:34 AM CST

Lots of prayers going your way for a quick recovery from whatever is going around. Tell Tucker way to go at Church tonight he did a great job! Talk to you soon!
Paula and family <kidchazer4@hotmail.com>
Belle Plaine, MN - Wednesday, October 31, 2007 10:20 PM CDT

Just stopping in to say hello and that we are thinking of you!

MaryBeth & Alex

MaryBeth <attnymb@aol.com>
- Tuesday, October 30, 2007 7:32 PM CDT

Oh my gosh that is so awsome about the coq-10. we spend an absolute fortune each month not covered by insurance. It is rediculous. That is a blessing. yahoo! Taryn has a pediacraft bed that we zip her in with pads all around. It has been nice. Thoughts and prayers go out to all of you. Debbie
www.caringbridge.org/visit/taryn
debbie fogel <ejfdrf@sbcglobal.net>
corona, ca usa - Wednesday, October 24, 2007 11:42 PM CDT

Every milestone is well worth a celebration for Patrick and all of you. I am praying for your application to be approved and for Patrick's continued improvements in hopes that your family can enjoy and well deserved family trip to Disney!!
Julie Beckius <jules05@frontiernet.net>
- Sunday, October 14, 2007 9:17 AM CDT

I stop by everyday for an update and to look at pics of Patrick. I can't believe what a big boy he is now!!! I'm so happy to hear that he has been doing well with the VNS and IVig therapy. Prayers always with love and hope! God Bless www.caringbridge.org/oh/skyecoleycole
Tamm <Tamm06@aol.com>
Ohio - Sunday, October 7, 2007 10:59 PM CDT

We had so much fun at the walk on Saturday. Brandon & Gregg were so excited to win medals for running. Krista enjoyed walking & talking with Tucker. It was fun walking & chatting with you Bonnie of course. Jeff your awesome, It was pure love to watch you stroll Patrick up & down those hills. We are so blessed to have you as friends & family. Patrick seemed to be having a wonderful time, all those hugs & kisses !!! We will countinue to pray for you all. We are here to support you in anyway we can !!!
Love ya all, Mary, Brian, Krista, Gregg & Brandon.
Mary Feltmann <feltmann5@frontiernet.net>
- Monday, October 1, 2007 2:39 PM CDT

I was in Duluth running a sled hockey clinic. I hope the walk went well and you had a huge crowd.
gaz <gazecc@hotmail.com>
- Sunday, September 30, 2007 2:41 PM CDT

Hey Jeff, Bonnie and family -
This has been and continues to be a long journey for you but you guys are amazing! Your little boy has so much love going his way. I continue to think about you and pray for your family.
Good luck with the fund-raiser....I sent my donation in your name yesterday.
Julie Beckius
Jordan, MN USA - Sunday, September 23, 2007 9:57 AM CDT

Hi guys
Just thinking of you tonight and wanted to say "HI". Thoughts and prayers go out to you all. Congrats to the new driver of the house ..Yahoo! what an awsome relief yet a little nervewracking! Take Care Debbie
www.caringbridge.org/ca/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, CA USA - Saturday, September 22, 2007 2:15 AM CDT

Alex and Koda are stopping by to say hello. Oh, if ONLY you guys lived closer. . . we would drag Patrick right along with us to see Laurie! Glad he seems to be feeling better!

MaryBeth & Alex

MaryBeth <attnymb@aol.com>
- Wednesday, September 19, 2007 5:34 PM CDT

Hello,
Thanks so much for the updates. We keep checking on how Patriuck is doing. Man is he growing!!!! He really looks long! Where did our summer go? I feel just awful that we did not get to camp yet. We haven't pu away the camper yet. Are you still game?
Terri
TRothmeier <trothme@mrvsec.k12.mn.us>
Chaska, MN Carver - Tuesday, September 18, 2007 3:30 PM CDT

Hey Luskey's glad to hear the VNS is working! Hope you guys get some sleep soon!

Paula <kidchazer4@hotmail.com>
- Friday, September 14, 2007 10:10 AM CDT

Hey Mr. Sleepy Head!!!! Time to wake up. But not literally right now so Mom can sleep tonite. Sending lots of love and prayers,
Dorine McNary
Williston, ND - Thursday, September 13, 2007 9:33 PM CDT

Alex is racing by to say hello!

Just coming by to let you know that we are thinking of you.

Love MaryBeth & Alex

MaryBeth <attnymb@aol.com>
- Thursday, September 13, 2007 7:44 PM CDT

Patrick,
It is nice to see you at the HopeKids Festival this weekend! You keep on getting more and more handsome each time I see you!
I hope that you continue to feel well, tell your Mommy to update when she can!
Margo <margoc@brainerd.net>
Pierz, MN - Wednesday, September 12, 2007 1:50 PM CDT

Dina has that horrible cough too. I'm nervous about Wyatt getting it. The neighbor kid had it for a month, ughhh! I hope Patrick is feeling better.
gaz <gazecc@hotmail.com>
- Thursday, September 6, 2007 8:51 PM CDT

Hi Jeff and Bonnie,
Just want you to know I check your journal often and I'm so glad you do it to keep us up to date on your family. I always ask the same question, "where has the time gone". You're always in my thoughts and prayers. Hopefully we'll see you sometime this weekend at Heimatfest.
Donna Will <dmaewill@comcast.net>
Jordan, MN - Thursday, September 6, 2007 11:10 AM CDT

We are glad to hear that the surgery went well and that Patrick is back home. You have all been in our prayers and will continue to be! We miss you all and can't wait to see you in December - if not sooner!
The Austin Woodards <austinwoodards@aol.com>
Austin, TX - Sunday, September 2, 2007 7:14 PM CDT

So glad you are home. I'm praying for success with the VNS!
luv Kelly and Kirkland xoxoxox
Kelly Kilbride <kilbridek@yahoo.com>
Gtown, On Cda - Monday, August 27, 2007 10:29 PM CDT

Hi Luskeys,
Just checking in to say Hi & sending our Love & Prayers to you all, Summer has gone way to fast.....
Wishing you all the best.......
Mary Feltmann <feltmann5@frontiernet.net>
Jordan, MN Scott - Monday, August 27, 2007 1:55 PM CDT

Glad to hear it all went smoothly.
gaz <gazecc@hotmail.com>
- Sunday, August 26, 2007 8:34 AM CDT

Hi Guys
Came by to check on Patrick. Im glad things went well with the surgery. I will be anxious to here how things go with the new VNS. Thoughts and prayers go out to you. Debbie
www.caringbridge.org/ca/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, CA USA - Friday, August 24, 2007 6:01 PM CDT

thinking about you all! Glad to hear you are home and that the surgery went well!!
Rachele and Zach <rlaco2001@yahoo.com>
Shakopee, MN - Wednesday, August 22, 2007 1:25 PM CDT

I'm thankful to hear Patrick did so well with the sugery!! What to go, Big Guy!! Love and prayers,
Dorine McNary
Williston, ND - Tuesday, August 21, 2007 11:22 PM CDT

Glad to hear everything went well and you were able to come home early! There is no place like home! See you soon!

Paula <kidchazer4@hotmail.com>
- Tuesday, August 21, 2007 7:59 PM CDT

Hope the surgery went well.
gaz <gazecc@hotmail.com>
- Monday, August 20, 2007 1:56 PM CDT

Sending all of you a ton of prayers! Praying that Patrick's surgery will be a success and that no complications will arise.
Margo <margoc@brainerd.net>
Pierz, MN - Sunday, August 19, 2007 11:51 AM CDT

Alex is flying by to say hello! Hope you all are having a fabulous summer.

Love, MaryBeth & Alex

MaryBeth <attnymb@aol.com>
- Sunday, August 12, 2007 12:16 AM CDT

I hope the VNS works for you. It would be so nice to be able to stop the seizure with a swipe of the magnetic strip.
Geri-Anne <gazecc@hotmail.com>
- Saturday, August 4, 2007 10:17 AM CDT

Hi Patrick, my daughter Hailee has mito and a VNS and another mom asked me to try to help your mommy out with questions, we have had it for 4 years. So please email me at angels4hailee@nc.rr.com

Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
west end, nc usa - Friday, August 3, 2007 6:45 PM CDT

I know how it feels to not have the guestbook signed. Sometimes it can really hurt. I'm here I check in everyday!!! Always praying and love seeing pictures of Patrick. He is such a big boy now!!!! God Bless
Tamm Mom to Angel Skye <TAmm06@aol.com>
- Wednesday, August 1, 2007 9:01 PM CDT

Hi Bonnie: We met very briefly once last year at sled hockey. Writing to offer: the CoQ10-Can you get Patrick's other Meds compounded and include the Tischon CoQ10? Dunno if you've heard also, but http://solacenutrition.com/reading-room/mitochondrial-disease.html is new to market; called Cyto-Q. Worth looking into anyway!
Kelly-Ann Larson <kwarren@visi.com>
Richfield, MN USA - Wednesday, August 1, 2007 5:19 PM CDT

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