about CaringBridge  |  home page  |  view guestbook  |  view photos  |  journal history  |  make a tribute donation

Click here to go back to the main page.

Tuesday, January 8 2013

13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13 13

HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU,

HAPPY BIRTHDAY TO YOUUUU, HAPPY BIRTHDAY TO YOU!!!

Happy Birthday to my beautiful amazing Michael.
I am humbled , Im so very proud of you, I can't believe you are 13 !!!! offically a teenager! you rock Michael!! I love you so much!, keep doing all of your amazing things that you do!
Love , peace and hope
MOM
xoxoxoxoxoxoxoxoxo

Tuesday, December 11, 2012 6:14 PM EST

May you all have a very Merry Christmas and a Happy New Year!
Michael is doing great! as you can see in the new pictures!!
rockin with Steven Tyler and Aerosmith!!

Sunday, April 8, 2012

Its hard to believe that 8 years has past since that dreaded day. Today, Michael has life and is thriving and growing, I am so blessed and thankful and humble.
My true hero, Congratulations Michael for 8 years cancer free!!! I LOVE YOU! YOU ARE THE SUNSHINE OF MY LIFE!!

Sunday January 8 2012

Happy 12th Birthday to Michael !
you are my true hero I love you so much, We are so proud of you!!
you, are a kind and gentle young boy with a huge heart of gold! You are magical! you are the sunshine.....
peace, love & happiness
Mom
xoxox

Friday, April 8, 2011 12:01 AM EST

Seven years ago today, our lives forever changed. I am sitting here, typing in this journal as I remember every single detail of our journey.

HAPPY 7 YEARS MICHAEL

I am so proud of you, we are so proud of you!
I thank God everyday, for all that you have conquered

I love You

Sunday, February 13, 2011 9:13 AM EST

Life is good.....God Bless

Saturday, January 8, 2011

Eleven years ago today, the joy, the love, my moon , my breath, my heart, my sunshine was born!

Happy Birthday to my beautiful son! Michael, I love you and I am so proud of you, you have come such a long way on your journey.

HAPPY BIRTHDAY! MY LOVE

Wednesday, December 8, 2010 9:58 PM CST

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit.
Did you ever wonder how mothers of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation.
As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with cancer."
The angel is curious. "Why this one God? She's so happy."

"Exactly" smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of self-pity and despair.
Once the shock and resentment wears off, she will handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you." No matter, I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps -"Selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see...ignorance, cruelty, prejudice...and allow her to rise above them." She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side."


"And what about her patron Saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice."

Thursday, December 2, 2010 9:39 PM EST

update shortly! having technical difficulties at the moment with pictures STAY TUNED!!

Friday, August 27, 2010 7:38 AM CDT

WOW! Well hello, its been a bit since my last update. We are just truly enjoying life! Its really hard to see summer coming to an end, and Michael starting fourth grade!! Next week. I can hardly believe my baby will be in the fourth grade.

The Lanosa –Bard family is doing really well, Michael had his annual MRI back in April and got a two thumbs up from his Docs. He ended third grade with an outstanding report card and received an Appreciation of Life Award how appropriate is that!

He Started summer relaxing and playing his piano and continuing with his lessons. Went to golf camp, and became quite the golfer I may say. He also attended Boy Scout camp for a week on his own (yes without mom on his tail) just day camp though :) A day at Canobie Lake Park and numerous trips to the beach. Had fun swimming in our friends pool next door!! Oh and yes, he also learned to ride a bike!! Still needs some practice, but rode the bike! Yes I teared up a bit.

We Attended Camp Sunshine, earlier this month and again its so great to connect with our BT families, its so awesome to see everyone, and so helpful in yet an ongoing recovery from a brain tumor journey, I truly love my BT families.

Michael or I ll say Sir Michael Knight of the Magical Sun, had been working hard with The Magical Moon Foundation on his mission to promote healthier suggestions on making this world a safer place for our children to live healthy lives. He has also, bottled his own lemonade! If you are interested in purchasing the lemonade please contact me. Michael also spoke at EMD Serono conference, EMD Serono is a pharmaceutical company, he spoke back in May during Brain Cancer Awareness Month. So Michael really has been quite busy with his mission.

I will be getting back to the grind after such needed summer break from MIT however its nice to get back to the boys!

Jefferey is doing great in the Navy, finished his schooling in Chicago and went to San Diego to finish the rest of his schooling. He will be stationed in Norfolk Va. In the next couple of weeks. He did excellent in his classes and got outstanding grades!
Josh graduated from high school and is currently active in the Navy recruiting program and enlisted, he will leave for boot camp sometime late winter, for the time being he is working with Jeff.

Justin is doing fine and has been working with Jeff this summer, seems quite busy in the cyber world , on his cell phone/IPod, and other electronic devices he has :) , he will be entering tenth grade and is thrilled to start Drivers Ed, look out!

Jeff, my loving devoted husband and the best father ever! Has been SO busy with work, working really hard this summer, no vacation for dad this year. Jeff is just excited for another winning PATRIOTS season upon us now! GO PATRIOTS!!

Please, remember September is Childhood Cancer Awareness Month, so please wear your gold ribbons spread the word and please on September 10th at 8pm tune in and watch Stand Up to Cancer. We have BT moms that that will be on, they will have shaved their heads for their children currently having BT treatment. They are called 46 mommas shave for the brave.

Thank you so much for always checking in on us, please keep Michael and his friends that still are fighting this disease and for his friends that have lost their battles to cancer in your daily prayers.
GOD BLESS YOU ALL AND LIVESTRONG
Peace
Jan and Family

PS Still missing you Dr. JB

Thursday, April 8, 2010 7:00 AM

Well hello there,
Yes I know its been almost a year since my last update, but I'll tell ya, we have been just ....living.... and enjoying life and each other. Each day is a gift and thats how we treat it. Today marks the 6th anniversary of Michael's diagnosis, Michael has been cancer free for 6 years!! He is doing great! and on the home stretch to finishing 3rd grade and ready for summer! Michael continues to play the piano with lessons and really loves it. He has also, become a cub scout. (yes Im one of the leaders!) haha and will take on some golf lessons this summer. He got a set of clubs for his 10th!! birthday and what a birthday that was indeed! a perfect surprise party!. Everyone is doing well, Jefferey has graduated boot camp last sept. and has now finished schooling and is a gunners mate in the Navy. Justin has become quite the chef and is truly enjoying culinary in high school. Josh will graduate from high school this June and is preparing himself for the Navy Seals program. Jeff continues to work work work!! and I am still with the guys at M.I.T. Just a quick update to let you all know we are good and thank you for checkin in on us from time to time. We are still on this brain tumor journey, but we are on the other side of 5 years! and living life as it comes our way and embracing everything in between. There are still so many of our friends that are still battling this horrific diesase. Please keep the children and their families in your prayers along with Michael and pray for the cure. Thanks everyone, God Bless and remember to LIVESTRONG!!
Luca's Light
Peace,
Jan and Family

Wednesday, June 24, 2009 10:51 AM EST

Hi Everyone,
Its been some time since my last update, well a lot has been going on in our very busy lives! Michael made his 1st Holy Communion, we watched Jefferey with honor as he graduated from High School, Justins induction into the Jr. National Honor Society and his High Honor Roll Dinner and 8th grade graduation, and a HUGE celebration party for Michael’s 5 year and Michaels step up to 3rd grade and a camp out at Gillette Stadium on the 50 yard line for our first annual Relay for Life! WOW yes its been quite a year for us. Michael adjusted so well to his new school, St. Anthony’s, he finished the last half a year of 2nd grade there and I am so happy that I decided to move him from his other school, he did so well and has thrived in all ways! He even entered a talent show at school and played piano and sang a duet with his new principal. No hes not shy.
His 1st Holy Communion was such a special day for all of us, he was so proud to receive this sacrament and of course very emotional for me to see him so close to God as he always is.

Jeffereys graduation was such a blessed moment for us to see this accomplishment.

Justins Jr, National Honor Society was such an honor, he worked so hard all year and it paid off big time! He got all A’s 38 of them, that will cost Jeff some $ since he told Justin in Sept. I’ll give you $5 fr every A you get this year and he surpassed and got all A’s hands up to Justin!! He will start High School in Sept.

We celebrated Michael’s 5 year with a Huge party, I have only been planning this for 5 years, I told Jeff when Michael was diagnosed 5 years ago that when we reached 5 years that we were going to give him the party of the century, I never thought I would get there, but we did and we did with a lot of Hope, Faith, Prayers, tears and the expertise of all his wonderful doctors , nurses and Mass General Hospital and all of your support. We celebrated with about 100 of our close friends and relatives. It was a day of pure fun, with lots of food, games , a band,a dunk tank lots of laughs, hugs and joy.

This has been one hell of a journey, I, we, have met so many wonderful beautiful people in “Holland” and as my best bud Nicole said to me on a t-shirt she gave me:
Tulips:$3.99 A POT
Being Dropped off alone in Holland : TERRIFYING
Learning Dutch: VIRTUALLY IMPOSSIBLE
Embracing Holland Together: PRICELESS

I am so happy now that I am only a guide in Holland now and I am here to help other families that land here. I am here to tell them our story and how to help them learn after the shock, that Holland is beautiful and the people here are wonderful and that I too was on my knees when I came here and now I will help you along as Nicole did for me and so many others that I met along the way, these friends are my friends for life and I love each and everyone so dearly.

We will continue to enjoy our lives and live in the moment and play in the moment, we have all come such a long way. Michael continues to enjoy his music and really loves his piano and drums, He often listens to his classical music collection and plays piano with it. He continue grow with the help of his GHRT. He is still active in his karate and hopefully with accomplish bike riding this summer. We will have fun on our annual family camping trip and enjoy the lazy days of summer.

Jefferey will leave for the United States Navy in July, God Bless our son and we couldn't be more proud
GO NAVY!!!!!!

We will attend Camp Sunshine soon and be there to help the new families that are attending for the first time at Camp and experiencing the magic of Camp Sunshine. We will Embrace life as it comes. Thank you all so much for keeping the faith and checking in on us for the past 5 years, we made it and I am so happy for my son and for my family. I am so thankful for all of you and the support we have received.

God Bless all of you and please always keep Michael is your prayers and all of the children that battle brain tumors/cancer everyday, that they and their families keep hope and faith as they travel through their journeys.
LIVESTRONG!!

Jan and Family

Dr. JB,
Thank you and I will always miss you!

LUCA'S LIGHT *

Friday May 1 2009

I just wanted to let you all know that MAY IS BRAIN TUMOR AWARENESS MONTH PLEASE WEAR YOUR GRAY RIBBONS AND SPREAD THE AWARENESS.
Thanks!
Jan



We. April 29 2009

Hi Everyone,
Michael went to his annual MRI and brain tumor clinic, he is doing AWSEOME!!! a great check up! all his doctors and nurses were so happy to see Michael and the progress he has made. I am so very proud of Michael. We also got to hang with my best bud Nicole and Luke, they were in Boston for Lukes annual. I was also very honored to be asked by Dr. Ebb and some of the staff if I wanted to meet a family that was being treated in the clinic, they have a beautiful little son named Ben, it was Ben's 1st birthday, see Ben was diagnosed with an ATRT same tumor that michael had. It felt so good to help another mom see some hope and light at the end of their tunnel, as Nicole did for me 5 years ago. I never thought I would be speaking to another family about hope and brain tumors. I feel as though this is my path now, we are on the other side now and Michael is a sign of hope for so many other families. This mom was so happy that we came to meet her and her baby Ben. I too welcomed her to Holland, as I was welcomed 5 years ago. Thank you, thank you God for my beautiful son Michael.


April 8 2009

FIVE YEARS

Five years ago today, my life, our lives, Michael's life changed. I will never ever forget the day I was told my son had a brain tumor, the day I landed in Holland.

Today, We are going to celebrate five years of hard work, many tears, many fears, many prayers, with my beautiful son. I could not ever, see this day five years ago, many told me I would get here, but time was still. An angel on this earth picked me up when I was on my knees and in despair and showed me the way, and for her I am so very thankful and have much love for her. Michael is here, I am here, we are here. Today, I am humble, grateful, thankful and honored to be Michael Lanosa's mom. Today I celebrate Michael's life.
I LOVE YOU MICHAEL (my bean)
I AM SO PROUD OF YOU
YOU ARE THE SUNSHINE OF MY LIFE
YOU ARE MY HERO

With so much love,
your mom
xoxoxoxoxoxoxoxoxoxoxoxoxo

LIVESTRONG
Here are two beautiful poems that helped me get through my son having a brain tumor Enjoy them

THE CHOSEN MOTHERS

By Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit.
Did you ever wonder how mothers of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation.
As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with cancer."
The angel is curious. "Why this one God? She's so happy."

"Exactly" smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of self-pity and despair.
Once the shock and resentment wears off, she will handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you." No matter, I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps -"Selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see...ignorance, cruelty, prejudice...and allow her to rise above them." She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side."


"And what about her patron Saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice."

HOLLAND

I am often asked to describe the experience of raising a child with cancer - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Monday, March 23, 2009 7:19 PM EST

Hi There,
I know its been such a while since my last update. So much has happened, first my thoughts and prayers are with The Oney family, their daughter Heather passed away on March 20, she was just 16 years old, The Oney family attends CampSunshine with us, Please pray that they will find some peace in the beautiful memories of their dear sweet daughter. www.caringbridge.org/visit/honey
Well then, Michael is now attending St. Anthony’s School. I withdrew him from The Waldorf right before Feb. Vacation. He started his new school the Monday after Feb. Break. This decision was difficult for me in the beginning and to actually make the switch, and after the first couple of days, It was the best decision I could have made. Michael transitioned so awesome, by the third day I was letting him off at the door to go in on his own. He loves the new school, the teachers and the kids. He really wanted to leave Waldorf, he was just not happy there and it was ultimately making him sick with stress,headaches and fatigue. So the switch had to be made. Now he gets a lot of homework! I really think he likes the academic challenge he gets, that he was not getting from his other school, and he has made friends. So great move! Michael is active in his karate and reading book after book. He is enjoying his piano lessons and will take drum lessons this summer. Gosh and he is getting so darn tall as well, my baby boy is getting all grown up on me so fast! “Please”! I tell him so down! We are approaching his five year date. I am planning a some what of a LARGE celebration for this. I can’t believe its been five years. We have been through so much, and have met so many people, some very special people on this journey. We have had so many ups as well as downs. We, Michael have come such a long way. I am so very proud of Michael he is a hero, and the sunshine of my life. So other then that life is good, I love my job boys are great, Jeff is good. Thank you so much for always checking in on us and please along with Michael, keep, all of our dear young friends that have to fight this battle everyday, and their families for the strength to keep going in your daily prayers. God Bless and LiveStrong!!! and LUCA’S LIGHT my friends spread LUCA’S LIGHT!
PEACE,
Jan and family

Friday, February 27, 2009 8:42 AM EST

Hi Everyone,
Thank you so much for all your prayers for Luke, he is home and doing great!!!

Stay tuned this weekend, for an update

Thurday February 5 2009

Update:
Hi everyone, Please, pray really really hard for Luke Ronco and his mom and family, Luke is going in for a major brain surgery and needs the power of prayer and a whole lot of positive energy flow. Thanks so much
www.caringbridge.org/pa/lukeronco



Sunday January 25 2009

Today we celebrate, we celebrate the day Michael finished his treatment 4 years ago. Congratulations! to Michael!! you get stronger and stronger each day.



Thursday January 8 2009

HAPPY BIRTHDAY TO YOU... HAPPY
BIRTHDAY TO YOU... HAPPY BIRTHDAY to my dear sweet son Michael HAPPY BIRTHDAY TO YOU. 9 Years old I can't believe it. Where do the years go? I sit here and reflect back to all 9 years that I have had the pleasure of being Michael’s mother, The most wonderful times and the most challenging times, I was putting Michael to bed and we were talking about how he was born and what time etc. It brought instant tears to my eyes to go back and tell him all of my feelings at that time, and what was the first thing I thought when he was born and what did I do and what did I say to him, I love him so much it hurts sometimes, well most of the time :) I almost lost my son and I am so very very grateful I have him and that he is going to be 9. Michael of course is talking about his next birthday when he will be 10! I told him to please slow down, enjoy each year, they go by so quickly. This is a really big year for Michael, on January 25th will be 4 years of treatment :) and he will have his 5 year on April 8th. That is such a big number in the cancer world, I never thought we would be on this side, 5 years, my God, the places we have gone, the beautiful people we have met, the crazy journey we have been on and are still on. Being a resident of Holland has its ups and downs, but I will tell you, that there is so much beauty here you just have to open your eyes and take a deep breath and take it all in, the tulips are the most beautiful and precious. We had a great Holiday season and santa was very good to all of us. We rang in the new year with good friends and family at home. We now celebrate Michael’s and my birthday, mine seem to come more quickly then ever now, Jeff tells me to stop filling the calendar with things to do and that might slow down life a bit, I disagree, I love to LIVE! And do fun things with fun people all the time, life is so short, but life is also good! Michael continues to play piano and is doing so well with his lessons, he has graduated to another belt rank in karate, and shhhhhh it’s a secret , he doesn’t know yet, he is getting a drum set for his birthday, yes a drum set :) :) heheheheh I can’t wait to see the look on his face so cool! He continues to grow with the help of the GHT we don’t like the injection so much its still a hassle but we do it and move on and it is working, he is growing right out of his clothes and shoes. Second grade is good for him he seems to be enjoying it, I think he has found his place, and he is reading all the time now. I read to him, we both love The Magic Tree House series we are reading them now. The greatest gift of all is motherhood, being a mother is the most rewarding gift I could have ever received in my life and I thank you God everyday. Thank you for checking in on us, we are good. Please keep in your prayers, Luke, the Lam family, Lauren,Lexie,Carly,Sammi, Ashley and all of our close friends that still have to battle this everyday. Happy New Year to all of you. GOD BLESS and LIVESTRONG

Peace, Hope and Goodwill,
Jan and family

Thursday, January 8, 2009

HAPPY BIRTHDAY TO YOU... HAPPY BIRTHDAY TO YOU... HAPPY BIRTHDAY to my dear sweet son Michael HAPPY BIRTHDAY TO YOU. 9 Years old I can't believe it. Where do the years go? I sit here and reflect back to all 9 years that I have had the pleasure of being Michael’s mother, The most wonderful times and the most challenging times, I was putting Michael to bed and we were talking about how he was born and what time etc. It brought instant tears to my eyes to go back and tell him all of my feelings at that time, and what was the first thing I thought when he was born and what did I do and what did I say to him, I love him so much it hurts sometimes, well most of the time :) I almost lost my son and I am so very very grateful I have him and that he is going to be 9. Michael of course is talking about his next birthday when he will be 10! I told him to please slow down, enjoy each year, they go by so quickly. This is a really big year for Michael, on January 25th will be 4 years of treatment :) and he will have his 5 year on April 8th. That is such a big number in the cancer world, I never thought we would be on this side, 5 years, my God, the places we have gone, the beautiful people we have met, the crazy journey we have been on and are still on. Being a resident of Holland has its ups and downs, but I will tell you, that there is so much beauty here you just have to open your eyes and take a deep breath and take it all in, the tulips are the most beautiful and precious. We had a great Holiday season and santa was very good to all of us. We rang in the new year with good friends and family at home. We now celebrate Michael’s and my birthday, mine seem to come more quickly then ever now, Jeff tells me to stop filling the calendar with things to do and that might slow down life a bit, I disagree, I love to LIVE! And do fun things with fun people all the time, life is so short, but life is also good! Michael continues to play piano and is doing so well with his lessons, he has graduated to another belt rank in karate, and shhhhhh it’s a secret , he doesn’t know yet, he is getting a drum set for his birthday, yes a drum set :) :) heheheheh I can’t wait to see the look on his face so cool! He continues to grow with the help of the GHT we don’t like the injection so much its still a hassle but we do it and move on and it is working, he is growing right out of his clothes and shoes. Second grade is good for him he seems to be enjoying it, I think he has found his place, and he is reading all the time now. I read to him, we both love The Magic Tree House series we are reading them now. The greatest gift of all is motherhood, being a mother is the most rewarding gift I could have ever received in my life and I thank you God everyday. Thanks you for checking in on us, we are good. Please keep in your prayers, Luke, the Lam family, Lauren,Lexie,Carly,Sammi, Ashley and all of our close friends that still have to battle this everyday. Happy New Year to all of you. GOD BLESS - LIVESTRONG

Peace
Jan and family

Sunday January 4th 2009

Hi HAPPY NEW YEAR!
stay tuned for Christmas and BIRTHDAY updates this week with new photos!

Tuesday, November 25, 2008 8:32 PM EST

Happy Thanksgiving
Its been some time since my last update, this is what happens with an extremely busy life no news is good news. Michael is doing so well, he has grown 2 ½ inches since he started his growth hormone therapy, so exciting! He had a really great check up at brain tumor clinic back in October, and have an MRI in the spring. Second grade is good, his reading is coming along and he and I love to read chapter books together. Michael continues to climb the belt ladder in karate. He won a huge trophy from a kick-a-thon he did the one thousand kicks. Piano lessons have started and he loves! Them, the sound of the piano in the house is so beautiful. I am really happy he has continued playing piano.
Michael’s soccer team, Amherst College is on to the final four, and going for the championship! How exciting is that! Michael is so pumped. Everyone is doing well, Jeff celebrated his birthday last week and Justin will celebrate his 14th on Sunday. Jefferey and Josh are doing great, Josh broke a record at his high school for football, he caught a 92 yard touchdown pass. He is excited to play in the big on Thursday. Thanksgiving is a pure and simple holiday, no gifts, no pressures, it’s a time to reflect back and remember what we are all so thankful for, a time to look at each person at our thanksgiving day table and be thankful for our goodwill. I am so very thankful for Michael and my husband Jeff, my other sons Jefferey, Josh and Justin. Family is so special, priceless, I am thankful for their health. May Michael continue to become stronger with each year that passes. I am thankful to be Michael’s mother and Jeff’s wife and Jefferey, Josh and Justins mother. I thank you and I love you. Please keep in your prayers our very close friends, that are still fighting their battles, and for those who will loose their battles. I am so thankful for these friends, I pray long and hard for all of you. May you all have a wonderful Thanksgiving filled with peace and goodwill. GOD BLESS all of you and LIVESTRONG!

Jan and family


HOLLAND

Friday October 31, 2008

HAPPY HALLOWEEN!!!!!!!!!

TRICK OR TREAT

stay tuned for an update and new pictures!!!!

Wednesday, September 10, 2008 8:51 PM EST

Hi Everyone September already! Where did that summer go?? Michael is now an official 2nd grader. We had a very busy summer, swim lessons, CCD classes, reading classes camping and weekends away. We now look forward to the beautiful days of the fall. I am back to work, everyone is back to school. Michael is doing well, and adjusting to 2nd grade just fine. He has many new stories to tell when I pick him up. I think he is enjoying school :) He is doing well with the growth hormone injection for the most part, it has become a nightly routine for the both of us, we help each other out with it, it is just something we have to do and thats that! He is due back to clinic in October for a check up for both endocrine and Brain Tumor clinic. We will see how much he has grown, I can’t wait. Michael has earned his orange belt in karate and is very proud of it as we are proud of Michael. Michael also was a part of a Kick-A-Thon for his karate school, he was to raise money and pledge to do a thousand kicks! And he did a thousand kicks! I couldn’t believe he did it but he did, way to go Michael! And the person who raised the most money, is awarded this huge trophy , we will find out next Sat. I think he won it and the teachers think so as well, again kudos to Michael!! We met a very special man, his name is Chris, Chris is also fighting his own battle with cancer. He and Michael befriended each other and we all became good friends he is an amazing man, the two have teamed up to spread awareness and fund raise for research. Chris also has a web site you should check out www.lucky13foundation.com
He is having a stem cell donor drive this Sunday we will attend after our annual Run of Hope, for The Mass General Hosp, Pediatric Hematology Oncology Clinic, the clinic where Michael was treated. . PLEASE REMEMBER THAT SEPTEMBER IS PEDIATRIC CANCER AWARENESS MONTH wear your gold ribbons to spread awareness and don’t forget to eat at Chili’s restaurant and create a pepper on Monday Sept. 29th all the proceeds go to St. Judes Hospital. Jenni, will not be running the Chicago Marathon this year, due to her moms recent diagnosis of early stages of breast cancer, please keep Jenni’s mom and family in your prayers, we all know the power of prayer, and please keep Michael and his friends that are still fighting their own battles. Enjoy the new season of autumn. GOD BLESS YOU ALL
LIVESTRONG and STAND UP TO CANCER

Jan and Family

Sunday, July 13, 2008 4:49 PM EST

AHHHHH! Camp Sunshine what a real treat! there is ture magic there. The kids had such a fantastic time. I actually get to sleep there, I think because I am so relaxed, my body and mind let me. The kids had a blast. Michael once again sang the most beautiful song to me at the talent show, “when somebody loves me” from toy story 2, talk about tears such love between us, its so priceless. I also got to spend time with old friends and met new families that have come to reside in “Holland” Nicole and I caught up during our early morning coffee hour, again priceless being at camp priceless, THANK YOU CAMP SUNSHINE! CHILDRENS BRAIN TUMOR FOUNDATION!! and JENNA'S RAINBOW!! Well its been awhile since my last update, Michael finished off the school year on a good foot, we were having some really rough social issues with other kids in his class, we worked them out and entered summer vacation at ease. Michael is now a 2nd grader oh my, where does the time go. He went for his 6th month check back in May, clear scans!!! and a 2 thumbs up check up. He is now at annual MRI’S and six month BT clinic. So, its now 4 years and 3 months in remission! Thank you God, He is having some growth issues, we are starting a GHT at home to help him grow, will see how this works. So far this summer we have been quite busy, with swimming lessons, reading and karate, which they have asked Michael to join the black belt club. Michael will start CCD classes at church this week in preparation for his First Holy Communion, he is so very excited. Other then lazy days of summer, we are planning our annual tent camping trip later this summer. Myself, I am ok hanging in there still following Michael’s lead. I am looking forward to getting back to work at the end of the summer. Jeff continues to do well and works SO darn hard he is an amazing husband, man and father, cheers to him!! Jefferey enlisted in the United States Navy, he will leave for boot camp next summer after graduation, he is excited about his next path in life, other then that, he is your typical 17 year old. Josh is doing well, he will start 11th grade and will be 16 this summer, he will be enlisting in the United States Navy next summer and will be off to boot camp after his graduation. He is doing well and can’t wait. Justin will start 8th grade in a new school here in Fitchburg, he is excited but still a bit nervous, he continues to be my side kick and sous chef! Luna is doing awesome she is such a wonderful addition to our family we love her so much, freesia is hanging in there and trying to always find a cool place to chill out. Thank you for checking in on us, and please as you keep Michael is your daily prayers he has so many friends that need some extra prayers, may the grace of God be with them and their families. Wishing all of you a happy, fun, safe summer. God Bless and LIVESTRONG!!

Jan and family

p.s. Jenni Glynn is running the Chicago Marathon in honor of Michael and The Magical Moon Foundation, please check out her web page and make a pledge any amount is something that goes towards all these kids that fight cancer everyday, these kids, our kids are on a mission to make the earth a healthier place to live, please help! THANK YOU!!
www.firstgiving.com/jenniferglynn

Wednesday, July 9, 2008 5:35 PM CDT

Hi there,
We are totally enjoying our time at Campsunshine, camp is full of pure, love, and magic. I will update when we get home, There is so much to tell you all about Michael. Love to you all. Please keep Michael and all of these beautiful children in your daily prayers GOD BLESS and LIVESTRONG!
Jan

Friday, June 6, 2008 7:00AM EST

Hi everyone
Check back for new update this weekend!

Tuesday April 8, 2008

APRIL 8, 2008

Four years ago today, the day our lives forever changed, the day our plane landed in "Holland" Michael has fought such a hard battle,he is such an amazing little boy, he is the strongest person I know, I love you my beautiful son, you are my hero, xoxoxoxo



March 24, 2008

Hi Everyone,

HAPPY SPRING!!
Spring, a time of year that everything beautiful has a chance to start over, a new beginning. A time of year when I think back to where we were four short years ago, and where we are now. I sit back and thank God every day of my life that I too get the chance to blossom again and to think how lucky I am to have my beautiful son and how lucky I am to have a beautiful family and such wonderful friends. Spring is here and we are too! We weathered through such a fierce winter and here we are on the brink of such beauty. Four years ago my life changed, in fact everyone around me, their life changed as well. Michael will enter his 4th year of remission!
CONGRATULATIONS MY STRONG SON! You are beating this horrific disease every day, and every year that passes it gets closer to a won battle. YOU GO SIR MICHAEL!!!
YOU ARE MY HERO!!! Michael continues to do well, he is going strong in his karate class and chugs along in first grade doing so well, in spite of some struggles in first grade with some challenging kids, he rises above it all and keeps on moving ahead and pushes his mom through too. Michael is learning to read and is just loving it, we read all kinds of books. He is really into the Junie B Jones first graders series chapter books, just loves them, and I love to read to him, I have always read to Michael. Mass General Hospital has asked Michael to be a permanent part of the Hospital and be a success story on their Wall of Hope, this is very excited for him and all of us, that they chose Michael to tell his story, more details later on this as the time gets closer for the story writer and photographer to come out later in April. Michael will start PT again later this spring and continues with his karate. Jeff continues to work really hard, Jefferey and Josh continue to do well in High school and have now started track, and Jefferey got a JOB! Yes a job :) Justin has his own room now and is very excited, and he is having a good year in 7th grade. I am challenged at work and continue to really enjoy my job. Luna is anticipating warmer days to get outside and play in her yard, Fressia is just going to be 17! And yes our new addition to the family, Sunshine, our yellow parakeet, Michael talked me into getting on a quick run to Petco, so yes we have a house full! Oh yes and I forgot, as Justin forgot to tell me about his “school project” the two fish, the two fish? I asked? yes, remember I thought I told you about that :)! They are coming this week! Well, thank you all for checking in, Michael’s next MRI is in early May so watch for updates. Please keep in your daily prayers along with Michael all of his friends that are still fighting the battle and are on the watch and live program. May God Bless all of these kids and their families and may God bless all of you.
LIVESTRONG!!!

Jan and Family

P.S. Jenni Glynn is running the Chicago Marathon in Honor of Michael and his other fellow Knights from the Magical Moon Foundation. We are in the process of setting up a pledge site to make donations.

P.S.S. still miss you Dr. JB

Saturday February 16 2008

Hi Everyone,
Our house is down with the flu AGAIN!! 3rd time in this house since Christmas! I will update as soon as we are back to good health, other then that things are good.

Jan






HAPPY BIRTHDAY TO MY BEAUTIFUL SON!!

Wow!! I can’t believe Michael is 8! Yes, I did cry, where does the time go? This is such a milestone, I cry because he is here and we celebrated another birthday and many many more to come!!. It’s a happy cry. We celebrated the day first thing this morning, I gave Michael a special gift from mom, a small beautiful music box, that he turns a tiny crank and it gently plays ‘When you wish upon a star’ ok we both had tears. It is so special. He then took the 21 cupcakes to school all decorated with hope,love and peace written on them (his idea) I picked Michael up from school and off we went to our annual birthday cupcake and movie day, we saw the Bee Movie, very cute. We headed home to celebrate with dad, Jefferey, Josh,Justin and Memoo and to have Michael’s requested birthday dinner, which included fresh corn on the cob! Fresh Corn on the cob is quite expensive in January! We concluded with a home made chocolate cake and many presents! What a perfect day! And it was 60 plus degrees out I couldn’t ask for a more perfect day. We had a wonderful Christmas and New years as well. Santa was again very generous to all of us. It was a beautiful holiday season and it was so awesome to be with family, and the break from everyday life was so restful and most enjoyed just staying at home and being in our PJ’s, playing with all our Christmas toys! and loving all that SNOW!!! Michael went back to school on Monday the 7th. Michael continues to do well and has received his second stripe on his white belt in karate, and is working toward his yellow belt, he is thrilled! He is still having a bit of a problem with the nausea and wiped out feeling, I took him to see his neurologist right after the New Year and had him checked out, since this is becoming more frequent, she seems to think that it may be the start of migraine headaches, although this has been going on for over a year, he will have a sleep deprived EEG done later this month to see if there is any seizure activity, I think they might be partial complex seizures, I really pray that they are not. Other then this little bump in the road, things are ok, I am just a bit worried about this one. January 25th will mark his 3 year of treatment day! Hooray!! Wow, 3 years! Another milestone and I will turn 40 on January 11, again another milestone! And yes, I did cry, So as we continue on our journey, I thank you for always checking in on us, and please keep in your daily prayers along with Michael, our dear friend from camp, Greg, who lost his battle with cancer at the very young age of 16 on Dec.30, may his family find some peace, and a fellow Knight of Michael’s Sir Alison the Awesome, who also lost her battle with cancer at the very young age of 19, may her family find some peace, and all of our children that need strong prayers and miracles may they continue to be strong and be free of worries and just be children. I wish you all a very Happy New Year! And may all of you and your families have good health, peace and happiness this year and always. God Bless and LIVESTRONG!!!

Jan and Family


P.S. still miss you and think of you all the time Dr. J.B. :)

P.S.S. Check out new pictures

GO PATRIOTS!!!!!
16-0!!! PERFECT!!!!! CONGRATULATIONS!!

Monday, January 7, 2008 10:46 PM EST

Tomorrow is Michael's 8th birthday!!!!!! so stay tuned for an update tomorrow night after the BIG DAY!!!! with new pictures

HAPPY BIRTHDAY!!!!!!!!!!!!!!! to my baby!!!! whos 8!!!!!
HAPPY BIRTHDAY
HAPPY BIRTHDAY
HAPPY BIRTHDAY
HAPPY BIRTHDAY
HAPPY BIRTHDAY
HAPPY BIRTHDAY
HAPPY BIRTHDAY

1-8-08 and he's 8!

SUPER 8!!!!

:)

Tuesday, December 11, 2007 10:04 PM EST

Merry Christmas everyone, may your Holiday be filled with peace, love, joy and hope. Be safe and healthy. Enjoy yourself, God Bless and Livestrong!

Jan and Family


oh yeah, GO PATRIOTS!!!!!!! :) :)

Friday, November 2, 2007 4:19 PM EST

Hello, First, CONGRATULATIONS!!!! BOSTON REDSOX!!! GO PATRIOTS!!!!!!!
Wow another month gone by. We really enjoyed Halloween, Michael was a Knight for Halloween as you can see in the picture. Michael is now a Kenpo karate white belt and is on his way to being a black belt (in a few years) he loves it!! We stopped P.T. for 6 months and took on karate. Its what he’s always wanted to do he says! Too funny. He continues to chug along in 1st grade and really enjoys school, and is really resilient with the bumps in the road along the way. He is doing quite fine. His 6 month MRI and check up was fantastic! He is catch up growing and his MRI is clear. We had a chance to meet the Amherst mens soccer team and Michael now proudly calls them “his” team, Amherst College is a beautiful campus and hope to see Michael attending there before he ventures on to Medical school! Hahahaha. The guys are awesome and we are so honored to be a part of the team. As we are approaching another year off treatment I am humbled to say how proud I am of Michael and myself and our family, as we work hard on Michael’s recovery and well being. I really appreciate all of you that continue to check in, to say hello and keep Michael and his friends that fight their battle, in your daily thoughts and prayers, especially this time of year with the holidays right around the corner, again thank you all, GOD BLESS and LIVESTRONG
Jan and Family

Sunday, October 14, 2007 10:32 AM

HE GREW!!!! and the scans are CLEAR!!!!! Michael had a great check up! Not that I though any different. Its always scary though. He is great! Endocrinology says he is catch up growing and this is so awesome, we did not think he was going to grow that much, he is still a bean, however, I’ll take 1 ½ inches in 6 months anytime! He won’t be 6 feet tall but he wont be 5 either. I can now focus on survivorship mode. Live life, I will always be cautious, but live to the fullest. We went to Camp sunshine last weekend for a brain tumor session the last session before the camp closes and they add a second floor on to the main building. We had a blast! We spent a lot of time with many new families that are now a part of our brain tumor family, Welcome to Holland! The Roncos came and spent the night at our house before we headed to camp together and a returning family came this year, The Finns, we all had such an awesome time together, many laughs! Nicole and Beth are karaoke QUEENS!! Go girls! To funny. Michael as you can see from the picture was a Master Chef, “Chef Michael” he calls himself, that was his costume for the masquerade party at camp, he will be a Knight, for Halloween. Fall is beautiful around here and we are very much enjoying it! Pumpkins, colored leaves and ghoulish days! Michael will start karate shortly and he has been discharged from PT and OT, we all thought karate would be a fun activity for him and he in thrilled to start. The Mens soccer team at Amherst College has adopted Michael to the team, through a brain tumor awareness foundation from a fellow Knight Sir Jaclyn, he is very excited! I am so thankful that all of you continue to check in on us. Please keep in your daily prayers, Michael and the children and families that aren’t doing so well and that need all of our thoughts and prayers. God Bless all of you, be safe, be happy.
LIVESRTONG!!!

HAPPY HALLOWEEN!!!!!!!!
GO PATRIOTS!!!
GO RED SOX!!!

Jan and Family


still miss you Dr. JB !!

Friday, September 7, 2007 2:26 PM EST

October 6 2007
Hi we are at Camp Sunshine this weekend, Michael has MRI on Wed. I will update after I get the results Happy October!!!!




1ST GRADE!!!!!! Oh my!!! yes thats my boy on the first day of first grade, with a smile a mile wide. Michael was just shining! He went to bed the night before and said to me “mom I want to shine tomorrow” and he was just glowing! He had a fantastic day, he loves his teacher and the day was just perfect, yes I cried and I could not get the golfball lump out of my throat. He is just doing so well and we are just chugging along on our journey together and enjoying each moment of it. The new pictures are from the fair that happened in early Aug. The magical moon foundation and Ms. Donna Green (the queen of the knights) had a great fair with so many people and supporters of the MMF, there were many knights Sir Luke and Sir Jaclyn,were a few of many knights that came, we had a few families from Camp Sunshine among us. I met up with old friends and made new friends, I love the farm its such a great and peaceful place to be. I thank you Donna you are such a beautiful person! The summer comes to an end and very quickly I may say, we did so much this summer and enjoyed everyday of it. Michael was so active, with swimming and camping and biking, the beach the carnivals and the weekends away, we even got to spend time with the Ronco’s at the fair. We will see them again at Camp in Oct. Everyone is doing well, Jeff continues to work as hard as ever and is SO excited to get the Patriots season started on Sunday! And the next 17 or so sundays!, Justin has started 7th grade and is in the top math class, Josh has started 10th grade and continues to major in carpentry , and girls :) and has been selected to be the started in the junior varsity football as the wide receiver, and Jefferey well lets just say Jefferey is 16 and leave it at that. Luna continues to chew everything and shed every piece of hair she has, and fressia is, lets say 16 and leave it at that as well. Myself, well, I am able to breath a little better,I am able to start to enjoy life a little more with a brain tumor SURVIVOR!! and I have landed a great new job! I am now the Chef for a frat house at MIT. SO... life seems good in the Lanosa-Bard house, we are humble and very grateful for each good thing that comes our way. Remember that SEPTEMBER is PEDIATRIC CANCER AWARENESS MONTH and please remember to wear your GOLD RIBBONS and speak out for children with cancer. On MONDAY SEPTEMBER 24 please have lunch or dinner at any Chili’s restaurant, all 100f the proceeds for the day go to St.Judes, pediatric cancer research. Also, if anyone is interested and will be in Boston this Sunday Sept. 9 the annual Run of Hope is being held at the hatch shell, the run or walk is 3.5miles and the proceeds go to the Mass General Hospital Pediatric hematology oncology clinic where Michael and so many other children have been treated for brain tumors and cancer, please help if you can, or go to www.fourseasonsrunofhope.com to donate or to come and have fun! I thank you all so much for checking in on us and please keep Michael and all the children that are affected with cancer in your daily prayers. GOD BLESS and LIVESTRONG!!!

Jan and Family

Saturday, August 4, 2007 3:10 PM EST

Hi Everyone,
Wow this summer is flying!! We are down to the lazy days of summer. We just got back from our annual family tent camping trip, what a fun relaxing time. Its so wonderful to go into the woods and really enjoy mother earth and all she has to offer us. The time we spend together is so priceless, I loved every moment. Now its back to reality and numerous loads of laundry! and on to the next projects! August, is again a busy month for us, Michael is hosting a Kids Fair at The Magical Moon Foundation, he has his very own lemonade bottled and labeled and ready to sell! We have been busy helping to plan this event with our very good friend Queen of the Knights Donna, If anyone would like to come to the fair or help out please log onto the link below on the MMF site. The fair is Aug 11, 2007 from 10-4. This day will be really great! We are looking forward to it. Michael has been doing so well, he has been swimming like a fish! And riding his bike. He is getting stronger and stronger I am so proud of his accomplishments. He wants to take karate, I think that will be a winter activity since he is so active now. We will visit friends in Vermont later this month and spend some time with Grandma and Grandpa in New Hampshire for the annual old home day, best fireworks display I have ever seen for such a small town, its right up there with Boston! First grade is right around the corner, Michael doesn’t want to think about it yet I don’t blame him enjoy the summer. The rest of the family is doing well and enjoying their summer as well. Thanks everyone for checking in, please keep our little friends in your daily prayers. God Bless You All
LIVESTRONG!

Jan and family

check out the new pictures

PLEASE if you can attend the fair please do so, its for a great cause and buy a bottle of lemonade and have it autographed!! By SIR MICHAEL THE KNIGHT OF THE MAGICAL SUN
If you can not attend and would like to make a donation or purchase the lemonade please do so by contacting me or go to the MMF web site and make a donation in honor of Sir Michael you can link below
Thank you so much for your generosity! its for the Kids!!



miss you Dr. JB :)

Monday, July 2, 2007 10:47 AM EST

WOW, what a fast week that was at camp, we are home and miss it already! Michael had so much fun and it was so nice to see all of our friends and to meet new ones. Jeff and I celebrated our 2nd wedding anniversary, I was at camp on the actual day and received beautiful roses from my dear husband and a serenade of our wedding song from Nicole, on Adult night at camp, thanks to Jeff and Justin getting Nicole to do that was quite funny! And very meaningful. Well the summer has been off to such a great busy start, Michael ended school on June 8th and is now a 1st grader, that is so amazing to me he is getting so grown up! And he is so excited to start 1st grade. Camp was awesome! It goes by so fast, I love and miss my camp families already. I spent a week with my very dear friend Nicole and family, I loved our morning (very early! thanks Italia :) ) coffee walks! And our talks. The kids love camp and I love the bonds we share with family an friends. Josh was the entertainment for the teen group, Justin took leads this year with the 9-12 group and Michael of course won hearts! Of many of the volunteers and myself, I focused on the parent workshops and groups. We will store the many memories of camp in our hearts and thoughts and wait to get there possibly in October and next summer. For the rest of the summer, Michael will take swimming lessons, he wants to take some karate and focus on his P.T. and O.T. We will take a family vacation later in the summer, our annual tent camping! So fun, the kids live it and Jeff enjoys the challenge of setting up “the village” as he call it. We will enjoy many day trips and relaxation on the lazy days of summer. Thanks for checking in on us and thanks for all the support and prayers and please remember to pray for all of our friends that still have a hard battle to fight and for all the kids we lost this year, may they be at peace and their families find peace in their hearts. God Bless you all and LIVESTRONG!!!
GO CAMP SUNSHINE!!!!!!!!!!

Jan and Family

Saturday, June 23, 2007 9:08 AM EST

Hi Everyone,
We are at Camp Sunshine! We will update all the fun when we get back!

GOD BLESS and
LIVESTRONG!!

Jan

Tuesday, May 15, 2007 5:17 PM EST

Hi everyone,
Well as we are rounding the corner of another school year coming to an end, Where does the time go? Michael is very excited for summer vacation as well as the boys are, I can’t believe how much everyone has grown, We cerebrated Jefferey’s 16th birthday in April, Josh will be 15 this summer and Justin going on 13. Luna also continues to do well and has adapted fine to her new home and family and she to continues to grow! Jeff works REALLY HARD as usual and he is great, me I am always cautiously optimistic, but am doing ok too. Fressia our old ornery cat will be 16 at the end of the month and she lets us know this too on a daily basis. We have many plans, along with a lot of swimming and swim lessons. He continues to do well, however, Michael has had some trouble with nausea. We have no idea what this is, or what causes this condition, I think its late effects from chemo and radiation. No one has confirmed this though, one knows their child. We are anticipating our acceptance to Camp Sunshine, and really are looking forward to seeing old friends and meeting new ones. The kids are so excited to go as always. The new pictures are from Mother’s Day, we took in the BEST Red Sox game, after the world series win of course, the day was just perfect, I wish I could have frozen the time for a moment. It was the most perfect day. I had a wonderful Mother’s Day and I so very much appreciate my dear sweet family. Thank you all for checking in on us, please keep along with Michael in your daily prayers our dear friend Ethan, he has a long battle ahead of him and all our dear friends that have their own battles and who have lost their battles. Thank you, God Bless
LIVESTRONG!!

Jan and Family

Sunday, April 8, 2007 10:04 PM EST

April 24 2007
QUICK UPDATE!!

Our very good friend Ethan, has been diganosed with a second cancer
Advanced Lymphoblastic Lymphoma,
His orginal diagnosis was June of 04 with a brain tumor. He has been in remission for almost 3 years. He and Michael went through treatment together and had protons together. He and his family really need the power of prayer now. Please pray for Ethan and his family, along with Michael in you daily prayers.
Thank You I will update again soon






Happy Easter, Happy Spring, Happy Life,
Three years ago today, I can’t believe its been three years. What a journey we have been on. Today was a beautiful reminder of how grateful I am, for my son. I am humble, and proud. Last week we had a scare, Michael was admitted to MGH through the E.R. he was very sick, he immediately had scans done which turned out to be CLEAN and CLEAR! Thank God. This was one week before his sixth month MRI and BTC. We have no idea what was wrong with him, after numerous tests, he had ‘heartburn’ so we safely came home with some Zantac. I blame it on a late affect of chemo. One never knows, with our children. We followed up at BTC and Dr. Ebb and team give Michael two thumbs up with his check up . He is doing really well. We also got a chance to catch up with Sir Luke and Nicole and Auntie Sue, Lexie and Isabella and beautiful Italia. OH!! Did I have baby cravings!!!! and our friend Beth, from Campsunshine met us as well. Its so nice to get together. The visits are so far in between from Camp and clinic. Life just keeps moving quickly along. With all of our busy lives, I look at Michael and everything he has been through in the past three years, he is such a strong and smart 7 year old. I have reflected back as I always do especially this time of year. I remember to, not forget, and not to take things for granted. That life can quickly change in the blink of ones eye. So remember to stop, and smell the tulips for they are beautiful! May God Bless all of you and may you all have hope and love in your hearts. Thank you for your prayers,
LIVESTRONG!

Love, Jan

p.s.
Miss you Dr. JB

Friday, March 2, 2007 8:12 AM EST

Hello,
Well as you can see, we have a new addition to our family. Her name is Luna. She was born Dec. 26, 2006 and the boys as well as Jeff and I adore her. She is the cutest puppy. Michael is so cute with her, he wants to play with her but will not except puppy kisses, he says that’s gross. Luna will get a kiss in :) As you can see we finally got some snow and we had so much fun playing, the Valentine’s Day noreaster dumped about 8 inches our way and we had fun fun fun. Michael has asked to learn how to ice skate(yikes) I bought him a cage hockey helmet and hockey skates, now if we had some freezing temps to skate. He also asked to learn to ski, that will be next year. Michael continues to do well, he does have weakness in his hands and he is working hard at O.T. and P.T. for the strength in his legs. He loves his piano and is doing so well at it. We listen to a lot of classical music on our long commute to school in the AM. The boys are well and Jeff and I are as well. We are approaching 3 years since Michael was diagnosed in April. I thank God every day for my son’s health and may he continue to be healthy. Thank you for checking in on us and please remember and keep in your daily prayers along with Michael and his friends and all the other children that have their battles with cancer and the ones who have lost theirs. We have lost a lot of friends from Camp, may their families find some peace in their lives. God Bless you all and LIVESTRONG!!
HAPPY ST. PATRICK’S DAY

Jan, Jeff, Michael ,Jefferey, Josh & Justin

Thursday, January 11, 2007 1:38 PM EST

Happy Birthday to Michael and Mom!! And Happy New Year to you all!
Wow! another year older for Michael, he is SEVEN!! and myself, just another birthday they seem to come much quicker at this age. As you can tell in the new photos, we all celebrated the holidays with love and joy. We had a fun filled holiday season. The nice warm weather brought us outside to play, and to even see some of the spring flowers waking up with some confusion, crazy weather, today its 28 degrees, burrrr. Michael continues to do well as all of us are. He is loving school and just loving life in general. We celebrated Michael’s birthday at The Rainforest Café with family and his good friend Christopher. He would really like to see some snow for some real winter fun, like sledding. Michael is doing well in his P.T. and O.T. and his anniversary of two years off treatment is on January 25th. The days, months and years are going by so quickly. His remission is 2 ½ years. I am so thankful. His next MRI will be in April and we will also get to visit with our dear friends Luke Ronco and family. I, as much as Michael look forward to this visit. Just a quick update this time, thank you all for always checking in on us, we are doing ok, one day at a time. We are slowly healing. Please keep Michael in your daily prayers and please remember all of his friends that have lost their battles to cancer this year and who are still battling this disease, may they have some peace in their lives. God Bless and LIVESTRONG!!!

Jan, Jeff, Michael, Jefferey, Josh and Justin

Monday, December 11, 2006 EST

Hello,
Wow, another Christmas upon us and a new year, a time to reflect back, a time to think about the year we are about to leave behind, a time to celebrate life and new beginnings. I am so grateful for my family, Michael’s health and another year off treatment, another year of remission. I thank God everyday. I always seem to be humble around this time of year. Michael’s smiles and laughter and excitement for Christmas and the arrival of Santa is so precious. The talk of Christmas Mass and the letter to santa, the buzzing of holiday spirit in my home is so priceless, everyone is so excited. Michael continues to do well, he has taken on piano lessons and really loves it. He has also started O.T and P.T with a new team that specializes in Pediatrics, and he is doing so well. He is really excelling and enjoying his school friends and anticipating school vacation to have more play dates and maybe get some sledding in, (if it ever snows). The rest of the family is doing well, Jefferey is finishing up his first semester of 10th grade and had a great football season and is now on the basketball team. Josh is having a blast in the 9th grade and also had an undefeated football season and is as always charming as ever. Justin has become active in our church and is now an alter server and will serve our Christmas Mass, and he is also doing quite well in the 6th grade. Jeff is doing well himself, always working so hard and so dedicated to our family, and always takes the ups and downs of his favorite team New England Patriots. Such a devoted fan. Well from our Winter Wonder Land to yours, we wish you all a very Merry Holiday Season, filled with Hope, Peace and Joy. Thank you all for checking in on us, and please remember this holiday season and in your daily prayers to pray for our friends who have lost their children to cancer this year, may the grace of God be upon their families and may they find some kind of peace in their hearts. May God Bless you all.
MERRY CHRISTMAS! And LIVESTRONG!!

Jan, Jeff, Michael, Jefferey, Josh and Justin

Saturday, November 18, 2006 8:15 AM EST

Happy Thanksgiving! may you all find peace with your families as I will with mine. I am very thankful and humble again this year, May Michael continue to be safe and healthy, as well with all of you, God Bless you and your families be safe and happy!




November 4 2006
Hi,
Boy have we ever been enjoying the fall, We have done so many things as you can tell in all the new pictures. Michael and I went to Camp Sunshine, just the two of us, it rained really hard that Saturday, but it really didn’t matter, cause its CAMP SUNSHINE and there is always sun and smiles. We had a great time and a much needed time for just mom and Michael, we ran in to some old friends and made new ones. We also enjoyed ourselves at the annual pumpkin festival on the Boston common, for Camp Sunshine. The pumpkin festival broke the record this year, over 30'000 pumpkins lit the commons. Michael is doing well, he has started physical therapy up again and is planning to start some O.T He is loving school and his friends. We had a really fun time at Halloween. Michael, Justin, Jefferey and Jeff went trick or treating in our new neighborhood. Michael was so excited, running to be the first to ring the door bell saying “Justin, I’ll ring it first, let me do it first” running as fast as his tired legs could take him. Now we are on the road to the holidays, a really great time of year for us, the time of year filled with hope and spending time with family. Just a quick update this time, I thank you so much for continuing to check in on us, we are coming up to two years off treatment, therefore coming into this time of year is a bit humbling, we are very thankful and filled with hope and dreams. Please keep Michael in your daily prayers and all his friends that are struggling with there battle against this awful disease and for the families that have lost their loved ones this year, may they find peace in their hearts and with their family. GOD BLESS you all and LIVESTRONG!!

Always with Hope,
Jan and family

Monday, October 2, 2006 8:45 PM EST

QUICK UPDATE, OCT, 14

Michael's MRI came back clear! he had a great check up at Brain Tumor clinic.




Hi Everyone,
September gone already! And its MRI time again, Michael will have his 5 month MRI next week, he is doing really well, and can’t wait to tell Dr. Ebb that he got his reflexes back and all the exciting fun things he has done this summer, I take each day still, just one day at a time. Michael is really enjoying school. He is learning to tell time and tie his shoes. He is making new friends in school. We are really enjoying the fall and our new neighborhood. Michael is becoming independent in his daily routine getting ready for school, helping around the house pouring his own drinks. Becoming quite the big boy over night. He is always so happy and keeps me going. His smile and laughter are quite the medicine for me. He is looking forward to trick-or-treating he will me SUPERMAN this year (Ironically) and wants to get to know our new neighborhood, ask me if we could just do that this year and not go to our annual MGH trick-or-treat day there. I guess he is putting this all behind him. I really take lesson from my son (move on) its so hard to, he also tells me that the ‘sickness’ was harder on me then him, such an old soul in a young body, he has such outlook and wisdom at such a young age. He is a true gift. As most of you know October is our favorite month we will enjoy each day of it and look forward to leaf color and raking leaves in our own yard and jumping in them! Getting pumpkins and apple picking. Thank you for checking in on us, we are doing ok and living life each day as it comes. Please keep Michael and his friends in your daily prayers and the grace of God be with all of them. Enjoy the beautiful sunny fall days, as we will. Life is a gift, everyday is a gift. God Bless and LIVESTRONG!!!

Jan and Family

P.S. I will update again soon

I really miss you!! Dr.JB

Friday, September 1, 2006 9:29 PM EST

Hello,
Wow! I can’t believe another summer...over, so fast. We were so busy this past summer. Michael really enjoyed his swim lessons. He loves the water, and loved learning how to, not be afraid of the water. He still has a ways to go before he really knows how to swim, but he did great this summer learning the doggie paddle and putting his head under water. We also had a regular routine check up at the Doctors for school, and found that Michael had gotten back his reflexes! He lost his reflexes as a side affect from Chemo, we thought after not getting them back after a year they were gone, they came back. This is awesome news since this helps to, with balance and coordination, he is really walking better and his gate is a bit less noticeable. . Michael is getting ready to start school next week and is very excited to be in Kindergarten with Leah and Nan. I of course love this time of year, Fall. There are so many things going on through Fall especially at Michael’s school, lots of fall activities. Remember this is September, and it’s PEDIATRIC CANCER AWARENESS MONTH, so please wear your gold ribbons in Honor, and in Memory, of all the children that are fighting cancer and that are Losing, and that have Lost their battles. We are attending a walk in Boston on Sunday September 10, as we do every year called The Four Seasons Run Of Hope, these proceeds go directly to the MGH Pediatric Hematology Oncology Clinic, where Michael was treated. If you are interested visit www.fourseasonsrunofhope.com this is another way we like to give back and say thank you to the Doc’s at MGH for saving Michael’s life. Also, mark your calenders for Monday September 25, if you eat at Chili’s restaurant all of the proceeds for the day go to St. Judes Hospital for children with cancer, and pediatric cancer research, and if you eat there through the month, when you buy a chili pepper and color it, all of the peppers sold, also go to research. So please , if you are going to give this would be the month to give. Congratulations to the Ronco family as they have a new edition to the family, Luke has a new baby sister Italia. Again, I thank you all so much with my whole being for checking in on us here and there, and the daily prayers and please pray for Maverik and his family that the grace of God be with them. Thank you and God Bless.
LIVESTRONG!

Jan and Family

Sunday, August 6, 2006 6:20 PM EST

Hello,
What a fun camping trip we had with our family! The pictures are from this past week. We went tent camping, our annual family vacation. Michael has progressed so much from last years trip, he was able to do a bit more and really enjoyed himself. He also had his good friend Christopher join him for a few days with his mom. Swimming lessons are a big hit! Michael loves to learn how to swim, he loves the water. I am so happy that he can excel with this. Since the last update I took Michael to see an endocrinologist to find out about his growth factor, a bone age was done and he is about a year behind. Time is on his side right now, so we can watch him over the next few months to see if he can catch up, being active again may encourage his growth. Growth hormone therapy is my last resort, however this is not a factor at this time, there are so many risks with the kind of treatment, number one of my concern, is that it can cause tumor growth. So at this time I am happy to say we are not going that route...and are hopeful Michael will catch up so we don’t need to go that route. Michael is scheduled to have a physiological assessment test down this month, he had one done two years ago as a base line before he started Proton Radiation treatment. Other then that we are having a fun.. fun.. summer. Just a reminder for September, September is PEDIATRIC CANCER AWARENESS MONTH. I will remind again next update. Thank you all for checking in on us. Michael’s friend Maverik who is 6 is losing his battle with spindle cell sarcoma, an awful cancer, he will start hospice on Monday. I am aching for Maverik and his family, this hits us very hard, since Michael and Mav share the same Doctors and have shared time together at MGH. I have not been through this before with someone so close to us, CANCER SUCKS!!! I am so angry at this vicious disease that it will take away another beautiful child and leave a mother in despair and a family in grief. Mav’s web site is www.caringbridge.org/ma/maverik please keep Maverik and his family in your prayers and that the grace of God will be at their side at this time of pain and sorrow. Thank you
GOD BLESS and LIVESTRONG!!


Jan and Family

P.S. I really miss you Dr. JB

Wednesday, July 5, 2006 8:38 AM

We're back! we had such a great time at Campsunshine. The week always goes by so fast. It seems to take forever to get here and then its over. It was so great to see and catch up with all our old friends and meet new friends. Michael had his one on one counselor from last year, Michael and that was great. Michael did some more activities this year, he tried doing the paddle boats, he liked it for a very short time, the feeling of being on water made him a bit queasy, but he tried and went out for five minutes. He played a lot of mini golf and other camp fun games, he was moved into the 6-8 group this year and that to him was a big deal! He also did a lot of swimming and crafts. Its always so hard to say goodbye or farewell till next year, when leaving campsunshine, knowing there is a chance a child won't be there next year. Its so wonderful to have that time at camp. HANDS UP TO CAMPSUNSHINE!!! TILL NEXT YEAR!! Michael will start swimming lessons this week, I think I am more excited then he is! I can't wait for him to learn to really enjoy the water and of course to be safe around water. We had a very relaxing 4th of July we stayed home. I did numerous loads of camp laundry and the kids enjoyed each other. After being away, it was nice to just spend the time at home. We had a BBQ and watched some fireworks and put out our little backyard pool to keep cool, always fun. Our summer continues with tent camping and some day trips we also talked about the beach. Thank you for checking in on us, please, remember Michael, and his friends in your daily prayers, as some continue to fight this battle and some will lose the battle this year. I would like to thank Campsunshine and ALL the staff and All the volunteers that once again made our week at camp a fun and restful and worry free experience THANK YOU!! and a very special thank to The Childrens Brain Tumor Foundation. Till next year CBTF 2006
LIVESTRONG!!! GODBLESS

Jan and Family

Saturday, June 24, 2006 10:16 AM EST

Hello!

We are at Camp Sunshine. I will update when we get back!
LIVESTRONG!!

Jan and Family

Wednesday, May 24, 2006 9:30 PM EST

Well, first things first! As most of you know, it was MRI and brain tumor clinic today. The results are in, CLEAN CLEAR SCANS!!!!! a perfect check up!!!. Dr. Ebb says Michael is doing outstanding! I sigh when I say that, one step at a time, one day at a time. However I do need to give GREAT thanks and credit, when it is due, and my angel sunshine Michael has done so well with his recovery, and hard work in physical therapy. We can start our summer with a great outlook and lots of plans. Michael will take the summer off from his P.T. as long as he stays active enough, he’ll start again in the fall. Michael will take some swimming lessons and we have a family camping trip planned as well, we are hoping to attend Camp Sunshine again this summer. Michael will finish his last day of school on June 14. Dr. Ebb suggests we take Michael to see a specialist this summer to see if he needs help in the growth area, he will also take another psychological assessment, he had one done two years ago when he first started his radiation and protons therapy. It was so great to see all of our MGH friends and we even made a trip up to Ellison 17! And saw some dear friends. I am attending a program group, called Moving on...Adjusting to life after cancer treatment. This is a program for parents to explore the emotional issues when our children complete treatment. I am very excited to get to this discussion. I have so many overwhelming issues and emotions. This will help all of us, all around to try to move on, from what has happened to Michael and to our family. Its NEVER over I think we just learn to live life differently and to adjust to life in “Holland” even though Michael is disease free for two years now, we are forever changed. There is a constant reminder everyday of our lives. Even if it’s the feel of the shunt in his head or a limp or “Mom I have a headache” or “I feel a little dizzy today” or he is tired and his gate and balance are off. It’s never ending, but It is a small price to pay for life. I thank you all for checking in on us, and your continued support and daily prayers. Please keep in your daily prayers along with Michael his little friends who are fighting the battle with all their strength. I will update through the summer with new pictures.
God Bless and LIVESTRONG!!!

Jan and Family

God Bless you Grandma Geri
we miss you everyday of our lives as we come upon your first year anniversary 5/30/05 of your passing we love you xoxo

Friday, April 21, 2006 6:54 PM EST

Hello,
Yes, Michael has lost his two front teeth! Very cute I may say. The tooth fairy was very generous for the double lose of both front teeth. The picture above is from the MGH Marathon Pasta dinner held last Sunday for the runners and patients, this was the medal ceremony. Michael and Dr. Danielle Dwyer were partners this year. The Marathon was again a fun filled day at mile 20, this is where the MGH team meet the runners and cheer them on for the big finish. I would like to thank Dr. Danielle Dwyer who was not only one of Michael’s doctors through some VERY VERY extreme difficult times, through our journey but a very dear friend. Thank you Danielle we love and admire you. We also got to spend some time with our very good friends Nicole and Luke and Lukes sisters and aunt (love you guys) Michael is on spring break and we are enjoying the spring days. Michael and I had a vicious flu bug, which landed my little sunshine at MGH for a series of blood tests and a chest x-ray, when Michael spiked a fever we have to be careful because of the shunt, not so much as the port-a-cath since that has been removed, be still very cautious not to get an infection. He checked out ok and we were sent home. I think Dr. Ebb never wants Michael to have to be on Ellison 17 again I agree!! Just for visits. Michael is due for MRI later in May I will update after the results. Thank you so much for all that contributed to the marathon fund raiser, this will help other children and their families trying to fight and deal on a daily basis this horrific disease. Thank you for checking in on us and the continued support and prayers and please keep in your daily prayers Michael’s friends that are having a battle of their own with this, they and their families need the power of prayer to get them through.
GOD BLESS and LIVESTRONG!!

Jan and Family

P.S. Check out the new pictures!!

April 5, 2006

Hello everyone,
The picture above is from the 2006 Make-A-Wish Spring Gala this past Saturday evening. Michael was invited to attend this great event. Michael’s wish was one of the wishes profiled that evening and he was asked to sing a very special song for almost four hundred people. He was introduced by the emcee for the evening Liz Brunner who is a well known news anchor for channel 5 in Boston. Michael sang, ‘When you wish upon a star’ it was so awesome! and he got a standing ovation from 400 people! It was amazing. Yes, I did cry and so did most of the people in the room that evening. He is so truly amazing. This Saturday will mark the two year date, of when Michael was diagnosed, and the start of his remission. We will have a celebration for him, I will take this victory in a small humble dose and be very grateful and thankful, and move on. I can not prevail just yet. When Dr. Ebb tells me my son is cured, I will take a breath then and who knows maybe I will never prevail, having life bring you to your knees like that ,changes one forever. I keep my faith and pray everyday for Michael and I am so thankful for him. Michael continues to do well and he is getting stronger. He is active in his physical therapy. When are planning a long over due visit from our good friend Luke and mom and family later this month. Michael is really looking forward to seeing his buddy Luke and sharing all the jokes he has told me over and over again. The Lanosa-Bard family has moved, what an ordeal moving is, as everyone knows moving is just awful! But Michael and the boys now have a great yard to play and run around in. It was all worth it. Michael is getting so much stronger and active, he needed and well deserved a big yard to play and grow in. He is really excited! He is know scooping out swing sets with the “green” canopies and climbing wall as we pass by yards on our commute to school each morning trying to find the best one. Michael is due for his next MRI in late May I will update again then, when we have the results. I want to thank you all again for all who check in on us and for all the continued support and prayers. Thank you.
God Bless and LIVE STRONG!!

Jan and Family

The Boston Marathon is two weeks away. Dr. Danielle Dwyer is running in honor of Michael this year. Please take a moment to log on to the web site (link is below) to take a look and please make a pledge in honor of Michael or a loved one. All the proceeds go to the Mass General Hospitals pediatric cancer clinic. To help children who are, or have suffered from this horrific disease.
Thank You!!

Wednesday, March 1, 2006 9:22 PM CST

Hello,
March already! Michael continues to do well. He is progressing and coming along just fine. I can’t believe its almost two years ago, Michael was diagnosed. My concerns now with myself are hen pecking with Michael, “are you ok?” “are you dizzy?” etc... “Mom I’m ok” he says reassuring me. It never ends, the fear is ALWAYS going to be there. I am so thankful for the other mothers that are in “Holland” with me. Or am I still in Holland? I have yet to figure this out, or were we just guests in Holland. I thank God everyday for Michael’s remission. He too is thankful and full of questions about the “sickness” I tell him just enough for him to understand... someday. Michael has a lot going on the next month, he has been invited to the Make-A-Wish 2006 Spring Gala in Boston a fund raiser and black tie event, he is really looking forward to. Again, The Boston Marathon is around the corner, Dr. Danielle Dywer, a doctor that Michael had through his treatments will run in honor of him with the Mass General Pediatric heme-onc cancer clinic. We are honored to have her as a runner this year. She is a very special doctor and friend. Please log on to the link below and make a pledge. The proceeds go to the clinic, this is a great way to help the clinic help other children like Michael who have had or are suffering this horrible disease. Thanks again for checking in on us, one day at a time one step at a time is still the motto in our lives, and this seems to work best. Please keep Michael in your prayers along with his little friends who are still fighting the battle. Thank you, God Bless and LIVESTRONG!!

Jan and Family

HAPPY ST. PATRICK’S DAY !!

Wednesday, March 1, 2006 9:17 PM EST

Hello,
March already! Michael continues to do well. He is progressing and coming along just fine. I can’t believe its almost two years ago, Michael was diagnosed. My concerns now with myself are hen pecking with Michael, “are you ok?” “are you dizzy?” etc... “Mom I’m ok” he says reassuring me. It never ends, the fear is ALWAYS going to be there. I am so thankful for the other mothers that are in “Holland” with me. Or am I still in Holland? I have yet to figure this out, or were we just guests in Holland. I thank God everyday for Michael’s remission. He too is thankful and full of questions about the “sickness” I tell him just enough for him to understand... someday. Michael has a lot going on the next month, he has been invited to the Make-A-Wish 2006 Spring Gala in Boston a fund raiser and black tie event, he is really looking forward to. They have asked him to sing a duet with the emcee of the evening which just happens to be a local news anchor woman. They will sing “when you wish upon a star” very exciting. Again, The Boston Marathon is around the corner, Dr. Danielle Dywer, a doctor that Michael had through his treatments will run in honor of him with the Mass General Pediatric heme-onc cancer clinic. We are honored to have her as a runner this year. She is a very special doctor and friend. Please log on to the link below and make a pledge. The proceeds go to the clinic, this is a great way to help the clinic help other children like Michael who have had or are suffering this horrible disease. Thanks again for checking in on us, one day at a time one step at a time is still the motto in our lives, and this seems to work best. Please keep Michael in your prayers along with his little friends who are still fighting the battle. Thank you, God Bless and LIVESTRONG!!

Jan and Family

Wednesday, January 18, 2006 5:59 PM EST

Happy Birthday Michael!!
Well the results are in! Michael’s MRI came back clean and clear!! :) :) :) :) Today, Michael had a rough start with trying to access the I.V. but after several attempts, and one BRAVE boy, good ole Heidi got it in. Michael’s check up at brain tumor clinic was another two thumbs up!! Dr. Ebb was very pleased with the progress. We also found out that next week on the 25th would be Michael’s one year off treatment and we thought that it was also his one year of remission. When in fact, according to Dr. Ebb, Michael is almost TWO YEARS in remission, the remission date started the day he was diagnosed and treatment was started, and that would be April 2004, so this April will be two years. This was huge news for us, to have almost two years under his belt. It brings us so much closer. We still have a couple of years to go. So, for the next year or so they will follow his growth, this is due to the radiation treatment. He is growing, but we need to keep a close eye, and hopefully he will not have to take any hormone growth meds. He will have another MRI later this year in May. Michael continues to really enjoy school and his friends, he is doing well with his physical therapy, he still has weakness on his left side but he works hard to strengthen it. He is doing well and enjoying life as he should and deserves. I am so thankful everyday for my son and his braveness and courage, he pulls me through every time. He is the angel of sunshine. Thank you all again for your continued support and prayers through this long journey we are on. Please keep in your prayers Michael’s friends that have had minor set backs or that have lost their battles to this disease. As we continue on this path we do so with strength, courage, and hope. Until next time, may GOD BLESS you and remember to always live life as it was your last and to always LIVESTRONG!!

With Love and Hope,
Jan and Family

p.s. better luck next year! GO PATRIOTS!!!!

Monday, January 2, 2006 10:18 PM EST

Happy New Year!!
What a busy year it has been, and as you can see by the pictures we had a fun filled Christmas with the boys. Santa was very good to all of us. We are looking foward to the new year, with Michael's birthday and my birthday just ahead and Michael's one year anniversary of his last chemo treatment. It has been a good strong year of good health for Michael, and we are looking forward to the next. Michael will have his MRI in a couple of weeks, and as he starts the second year off treatment, his MRI's will be once every four months. He is doing so well. We are so very proud of him. Thank you for checking in on us and please keep Michael and his little friends in your prayers. May you all have a happy, heathly, peaceful New Year filled with hope and happiness. May God Bless you all and LIVESTRONG!!

Jan and Family

I will update again after Michael's MRI, around January 18th p.s. I spy a missing tooth :) :)

Tuesday, December 13, 2005 5:29 PM EST

HO! HO! HO! Michael is so very excited for Santas visit. Michael is also very excited that he has lost his first tooth, as you can see in the picture. This was a big deal not only for Michael but for me. He got five dollars from the tooth fairy and I left a note and asked her to leave the tooth for me, since this was his first, she left the tooth, although Michael was concerned that she was going to leave a note back, saying I can’t leave the money without the tooth. I assured him many mothers ask this request the first time and that it wouldn’t be a problem. He is so cute. He is doing well and had a very long eye doctors appt the other day to see if the tumor had caused any optical nerve damage. The doctors at Mass Eye and Ear gave him a great check up and he has no nerve damage, his eye sight is right where it should be for his age. We are looking forward to a peaceful and quiet Christmas. As the year comes to an end and we start a new one, Michael will be six, I’ll be a year older and Michael will have his first year of stable remission under his belt. We will celebrate this day humble, with joy and hope and thankful that we have another healthy year accomplished. Way to go Michael!! Keep the beautiful spirit you generate. I again thank you all for keeping Michael in your daily prayers. Please keep Michael’s little friends that still have a battle ahead of them or who have lost their battles this year. May you all have a Happy Holiday Season and a Very Merry Christmas and a healthy Happy New Year, filled with hope, peace and joy. GOD BLESS and LIVESTRONG!!

Jan and Family

Monday, November 21, 2005 9:34 PM EST,

Hello,
What a month we have had, its been so busy with school and birthdays and all sorts of fun activities. Halloween was a blast, we went trick-or-treating at MGH the kids got so much candy and had a lot of fun . We also got to see friends we have not seen in awhile and thats always nice. Michael is doing really well he is just loving school and I am finally back to work part-time, while Michael is in school. Its slowly coming into place back to a somewhat normal life. Cautiously optimistic and one day at time. Michael is progressing in his physical therapy and getting stronger everyday. The other day Michael was making this annoying sound I thought I was going to jump out of my skin, but then, I said to Jeff remember last year at this time, Michael was so weak and the house was so quiet, that the annoying noise he was making became music to my ears, he was being a normal five year old boy and I was so happy. He runs around and jumps up and down and it’s the simple things that we take for granted that we all can do, that Michael is now doing it’s a beautiful thing I am so proud of him! On Sunday Michael and our family went to the Patriots game as Michael’s second part of his Make-A-Wish we had the best time and it was such a nice day. He was so excited he told me he had a dream the night before he was Tom Brady! We also got to see one of Michael’s favorite nurses at the game, Kim and he was surprised to see her. I guess as we close each chapter in our lives we have learned valuable lessons and also have said goodbye to people that really helped in a way that only they could have at their time and we will always be so grateful and thankful for them, so at this time of year as we approach Thanksgiving I am thankful for my sons remission and for all of the people that have helped him, me and our family get through this crisis thank you! And GOD BLESS all of you and may you all have a very Happy Thanksgiving. LIVESTRONG!!

Always with Love and Hope,
Jan and Family

Wednesday, October 19, 2005 6:26 PM EST

Hello!
Michael had his three month check up and MRI today and the results are in, CLEAN AND CLEAR!!!! HURRAY!!!!! Dr.Ebb and Dr.Jones gave Michael two thumbs up, a great check up. So with that I thank you all for the continuous prayers and good thoughts and well wishes keep em comin. Also please keep Michael's friend Maverik in your prayers for he is recovering in the MGH PICU after a serious tumor was removed. I will update again soon Thanks and GOD BLESS and LIVESTRONG!!!!

Jan and Family

Monday, October 3, 2005 6:43 PM EST

Hello,
We continue to be busy as we enter the autumn season, Michael has adjusted really well to being a kindergartner he loves it. The first day of kindergarten went well, I of course had a lump the size of a basketball in my throat but we all did great. Kindergarten is a milestone anyway, but for Michael to even be there was just huge, I was a very proud mother that day. Michael is really learning to become somewhat independent in school and he is leaning eurythmia (movement) and really likes it. He loves his teacher Leah and all his new friends and some old friends too. He seems to really handle and get through some of his own obstacles he may occur, when mom isn’t around. I am very proud of my little man. He continues his physical therapy and progresses each day, although going to school five days a week and everything he’s been through he gets really tired, but tries hard to get what needs to be done. We go one step at a time. The front picture was Michael’s first day of school as you can see he is very excited. Michael wanted to help the children of the hurricane he felt really bad for them so he gathered up some of his “baby toys” and donated them he wanted to do more, so he and the family held a lemonade and cookie stand, he raised $100.00 he felt really proud of himself and so did the rest of us, that we could give back something. It really was a great accomplishment for the kids to do. The Run of Hope was also held this year in September, we had a great time and we also met new friends from the New England Revolution Soccer Team. Craig the general manager was there with team captain Joey, we were invited to attend a game at Gillette Stadium, thats where we met Jonathan Kraft, and he landed us in the locker room of the New England Patriots. What another awesome experience for Michael and our family, We had a great time being behind the scenes of The New England Patriots. We also did our annual apple picking trip together with another family, our good friends The Finns, we met at Camp Sunshine this summer. What a great time we all had. Michael is looking forward to Halloween, he picked out a costume he is going as “the thing” his idea, if it had been mine I would have put him back in the pumpkin costume he’d worn until he knew there was definitely something more! MRI is once again around the corner, a couple weeks away. It just seems that the months are flying by. I can’t believe its been three months already. Its been just about ten months out. Michael is as bright as the sun he is the sunshine and such a happy boy. I want to thank you all for your continued thoughts and prayers. Please keep Michael and his sick and healing little friends in your daily prayers, until next time. Enjoy the fall as we will October is my favorite month of the year HAPPY HALLOWEEN and GOD BLESS and LIVESTRONG!!!

Always with Love and Hope,
Jan and Family

Thursday, September 1, 2005

Wow!! What a summer!! I can’t believe the summer is already over, Well I can tell you the Lanosa-Bard family sure did have a busy fun filled summer.. Michael is really doing well, his physical therapy is going great and has done so all through the summer. He really tries hard and enjoys it. Keith his P.T. and Michael like to make obstacle courses and Michael will try to beat his best time. He is really doing well in P.T. his balance and strength are the focus of his rehab and they really work hard. I can tell Michael has some neurological issues with balance and occupational uses, hopefully this can be corrected through P.T. The new pictures come from our last vacation this summer, our family and Meemo went tent camping, we had a blast a lot of fun and a lot of laughs. Michael really enjoyed himself. We are now getting ready for Michael to start kindergarten, another milestone, Michael is very excited about going to kindergarten, again we will take it one day at a time since kindergarten is 5 days we will start slow. Jefferey started high school, Josh has started his last year of middle school and Justin started his first year of middle school, so we have a few milestone going on in the Lanosa-Bard household. As we start September please remember that it is pediatric cancer awareness month and please wear your gold ribbons, also if anyone has a Chilis Restaurant in their area through the month of September, if you buy a signature chili pepper for a dollar and color it, the proceeds are going to St.Judes Childrens Hospital Pediatric Cancer Research, and on September 26, if you go to Chilis for dinner ALL of the proceeds for that day in ALL Chilis Restaurants will go to Pediatric Cancer Research. So please spread the word and have Chilis make dinner for you on September 26. Michael will have another MRI and a check up at the clinic toward the end of October. Until then we will stay focused on rehabilitation through P.T. and a new journey as a kindergartner We continue to miss Grandma Geri everyday and we miss her and pray for her, that she watch over us. Please keep Michael in you daily prayers along with his many friends we have met along this journey through “Holland” I thank you still for all your contiuned support and well wishes. We need the prayers we still have a ways to go again thank you all. GOD BLESS and LIVESTRONG!!!!

Jan and Family

Thursday, July 21, 2005 9:10 PM EST

Hello!
First things first Michael's MRI scans came back clean and clear and he had a two thumbs up check-up at brain tumor clinic. Dr.Ebb say he will now only have to check in at clinic and have a scan. This is really a step in the right direction for Michael and our family. So the Lanosa-Bard family has been on a whirl-wind of a time this summer and since our last update. Their was a wedding that took place and it was absolutely magical what a beautiful new beginning for everyone filled with love and hope and happiness. Then it was off to CampSunshine for a week of honeymooning with the family. This was a great time for all of us Michael had a great time and the boys did too. I spent time with a very good friend and her family and met a lot of new friends all living in the same world that we live in. What an experience Campsunshine was and we can't wait to get back there next summer. Next we headed to Hershey Park/Chocolate World in PA. Michael redeemed his "Golden Ticket" chocolate world hosted our family for a day and we had the best time we eat a whole lot of chocolate while the head chocolateer gave our family a private tour of chocolate world what an experience that was Michael was given true special treatment and gifts and a GIANT Hershey Bar it was about 5 pounds he could barely hold it up! the tour was awesome when it was over we had lunch in the kit kat cafe and then we had passes to Hershey Park for a day and evening of amusment rides and MORE fun!! I have to say THANK YOU!!!! to Roger Samson and all the people that made our day at Chocolate World and Hershey one we will never forget, oh ya, the head chocolateer that gave us the private tour, this is a secret so don't tell anyone, Jeff and Michael figured it out, that he was really "Charlie" all grown up and this is what he did to the chocolate factory that wonka gave him when he was a small boy :} Well we sure are making up for last summer with all the fun things we are doing. Michael's one year of his tumor removal was on July 9, I just can't believe its been a year, and to think where we all were then and where we are now its been one hell of a year. In spite of it all with the brain tumor and the pass of my stepmom we really have a lot to be thankful for and I am thankful everyday. We will enjoy the rest of the summer and will look forward for Michael to start Kindergarten and Jefferey to start High School and Justin to start middle school. Michael continues to work very hard in his physical therapy. And as always I will follow Michaels lead as we journey through life. Thank you for keeping up with my updates and please continue to pray for Michael and his friends in your daily prays.
GOD BLESS and LIVESTRONG!!!!

Jan and Family

P.S.
I will update again soon if not in Aug. then after Labor Day when Michael has his first day of Kindergarten

Wednesday, June 15, 2005 6:48 PM EST

Well here it is! Michael had his Make-A-Wish, he has finally met TOM BRADY!!! we all met Tom Brady! what a blast!! Tom is an awesome guy. Michael and the rest of the family took a limo ride down to Gillette Stadium to met and hang out with Tom as you can see in the pictures Michael and Tom are really enjoying each other. Michael gave Tom a yellow livestrong band and told him the band was for champs and that Tom was a champ and Michael is one to for beating the sickness. Michael then sang a Frank Sinatra song to Tom "I've Got the World on a String" and of course Michael won Tom over. What a FUN day! THANK YOU MAKE-A-WISH and thank you Maria and Jessica. Michael also had a great check up at brain tumor clinic today and will be going now once every other month with an MRI every three months. Michael continues to work very hard with his physical therapy and the progress is really good. Michael finished school and will start kindergarten in Sept. Next is thw wedding Michael looks VERY cute in his tux stay tune for next update. The next few weeks are packed full of fun for the Lanosa-Bard family. I will update around July 20th after Michaels MRI. On a very sad note, My step-mom, Michael's Grandma Geri passed away on May 30 may she be at peace and surround us with her spirit. We love you and will miss you everyday. Michael says she is now his and Grandpa Lanosa's guardian angel. Michael always seems to see the good in everything always has the right thing to say. He is my sunshine boy! and true hero, I love you baby! Thank you for your prayers and support and may you all enjoy the beginning of summer and happy 4th God Bless and LIVESTRONG!!!!

Jan and Family

Monday, May 23, 2005 6:52 PM EST

Hello to everyone! Michael is doing well he got another great check up at brain tumor clinic and he is working really hard with physical therapy, he is just focused on getting stronger and healthier everyday. Well,in spite of the past five rainy weekends, we have seemed to keep ourselfs busy through them all. Michael continues to enjoy school and will finish out the year on June 10. June is a BIG month for us. Jeff and I will finally get MARRIED!! we will enjoy a family honeymoon at Camp Sunshine :} and then Michael will have part one of his Make-A-Wish. Then Michael and I will have our debut on The Learning Channel a show called The Untold Stories of the E.R. which will air on June 27 at 9:00pm on The Learning Channel (T.L.C.) A very special friend and Doctor of the Mass General E.R. and the folks at the T.L.C. chose Michaels story. This is when DR. O'Malley and Michael and all of us met back on that horrific day of April 2004. DR. O'Malley calls the story "The Magic of Michael" Well as you can see through the lastest pictures how well Michael looks he is a CHAMPION!!! through and through!!! Thank You all for continued prayers and support untill the next update GOD BLESS and remember to LIVESTRONG!!!!

Always with Love and Hope
Jan and Family

Wednesday, April 20, 2005 9:07 PM EST

First things first Michael's MRI came back PERFECT!! and CLEAR!!! HURRAY!!!! he had a really good check up today at the clinic. Jenni also did an outstanding job running the Boston Marathon in Honor of Michael and was a part of the Mass General Marathon Team Cancer Care for Children. There was a pasta dinner the Sunday before the marathon for the runners and their patient partners, to recognize their accomplishments. Michael recieved a gold medal, for the marathon he has been through this past year, and for Jenni who actually ran the Boston Marathon, it was like a pep rally for them and very emotional for all of us. They are both true Champions! Thank You Jenni We Love You!! and Michael you are still the strongest bravest boy!! keep going sunshine!!! Michael is working very hard with his physical therapy, he now goes to an out-patient place, which is great! he likes Keith who is his P.T. Michael likes it a lot he thinks he is at the gym and Keith makes it fun and that works well. He is getting stronger each day and works hard. He does have good days and tried days. Michael is now back at school on a regular schedule he really enjoys being back, although he still feel more comfortable with me in the room, so I help out and this makes it fun for both of us, especially on those tired days. Michael is enjoys playing with his brothers and riding his bike playing ball with dad and doing boy things. He is really enjoying being a five year old and that makes me so happy! We had a chance to have lunch with our special friends Luke and his mom Nicole from PA. last week we really miss them it truely was a treat. Michael also got to hang out with some of the palyers of The New England Patriots that came to MGH up to Ellison this past Tuesday, one of the palyers remembered Michael from last spring this was very exciting especially for me! Michael had them all going "here we go Patriots here we go" too cool. Jefferey was also there and he had some of his football cards signed, it was a fun day for all of us. Michael will follow up again at the the clinic next month and his next MRI will be in July. Again Thank You All for your support and please keep Michael in your prayers, He is the brightest sunshine!!

GOD BLESS and LIVESTRONG!!

Always with Love and Hope,

Jan and Family

Sunday, March 27, 2005 7:34 PM EST

HAPPY SPRING!!! a time for Hope and New Beginnings. Well we have had a busy month. Michael had his Port-a cath removed from his chest earlier this month :} :} He has also been going back to school a couple times a week. He has been busy with his physical therapy and getting stronger everyday. He had his first brain tumor clinic check up and his check up was just fine, and he is growing. Michael is also scheduled for his first MRI scan later in April, I will let you all know as soon as I know the results. He also had a belated birthday celebration in school, his photo of himself being a little king for the day. This is a very special day for the children in his nursery class. Michael has really been enjoying riding his bike and playing with his brothers at home, he is slowly healing and doing so like a champ. Its been just about a year now since Michael got sick, this time last year. We really have alot to be thankful for. As a family we spent alot of time at church, especially this past holy week. We are so thankful we got through this extremely difficult year. This Easter was a very special one. This time of year gives you a fresh start, a new beginning and hope. We will move foward and Michael will lead the way. We have hope and trust in our hearts and Michael is a true inspiration and is the definition of 'Spring' he is a ray of sunshine everyday even when it rains. Thank You all for your daily thoughts and prayers. May you all have a Happy Spring filled with fresh, new, and hope.

GOD BLESS and LIVESTRONG!!
Jan and Family




Please remember Jenni who is running the Boston Marathon on April 18th, 26 miles, in honor of Michael.

Tuesday, March 1, 2005 9:58 AM EST

Wow! March already, as you can see from the new pictures Michael has been quite busy, With sleding and a trip to the Fleet Center to check out Finding Nemo on ice, with grandma, mom, and Auntie Suzanne, that was really a fun day! We even took a weekend trip to Grandpa Lanosa and Grandma Geri's house we had a lot of fun that weekend, Grandpa Lanosa is always fun. Michael has also been busy with his physical therapy and getting stronger everyday. He went for a check up at the clinic last week and he is doing really well. Michael will offically start school tomorrow. He is very excited about this and so am I. It's been nice to start to get back to a somewhat of a "normal" life. Michael goes everywhere with me again and I really enjoy that, its like it was before. I can't beleive that it has been almost a year. The time has gone by so quick, it didn't seem to at the time. We are really enjoying all this snow unlike most of you. Its the little things in life I guess we are really starting to enjoy, things you may have thought were a pain before. Our calender seems to be filling up very quickly with events, this is a good thing. This will keep up busy and enjoying life everyday. Michael has really started to get involved with learning two, yes two new languages spanish and sign. He really is doing well. He really likes it. So we now have the complete book of signing. I want to again Thank everyone who checks up on Michaels progress and keeps Michael in their daily prayers and thoughts. Thank you, enjoy the snow and remember spring is right around the corner.
GOD BLESS and LIVESTRONG!!!!


Jan and Family

Also please remember Jenni who is running the Boston Marathon in honor of Michael on April 18, you can check out her web site through the link on this site. Thank You!

Wednesday, February 9, 2005 7:22 PM EST

Along with Michael being a Champion his favorite team THE NEW ENGLAND PATRIOTS are the World Champs right along with Michael. He is a very happy boy. He also had a great time on Superbowl Sunday. We all did! Michael is doing really well, He had a check up at the clinc and he is now off the bone marrow rescue shots and will go back in a couple of weeks for blood counts and one more rescue drug for his lungs, we will then make the appointment to have the port a cath taken out sometime in March. Michael has been active as much as he can be, I have taken him on short outings to the store or for a ride in the car, which he likes alot. He's gone to church and has been busy making Valentines for his class and we will make a short visit to school on Monday to deliver the Valentines. He is having fun playing and being silly with his brothers. We have also taken on a new challenge with Jenni. Jenni Glynn for all of you who do not know Jenni, I was Jenni's nanny along with her sister Kate for 14 years. Jenni is now a freshman a Cornell Univ. She has joined the Mass General Pediatric Hematology Oncology Boston Marathon Team and is running the Boston Marathon in honor of Michael. Please visit her web site at www.justgiving.com/pfp/jenni and please help us find a cure. Please pledge what ever you want $10, $20 any amount will help. The Boston Marathon is 26 miles and she will train very hard for this event. We will support her every mile she runs for Michael and other children with this disease. So we are on our next crusade to find a cure and to help children get through this, as well as Michael is doing on his personal crusade. Again thank you all for the support and please keep the prayers for Michael and for Michael's Grandma Geri for she is fighting the disease. THANK YOU!!
GOD BLESS and LIVESTRONG!!!!

Jan and Family


(check out the new pictures!)

Wednesday, January 26, 2005 8:34 PM EST

HURRAY! HURRAY! Michael did it! he is done with the treatments. He did such an amazing job. He is so proud of himself. I am so proud of my sunshine. He had such confidence going into the clinic just being himself and being silly, of course he had his Tom Brady game jersey and his Patriots socks on. I could not swallow the large lump in my throat until later that night on the floor when everyone else was asleep. I reflected back through the nine months of this journey my son and I have been on, this too is my last night on Ellison 17. Michael is excited this is his last night on the floor. I myself am scared of whats around the corner, but as I've been doing all along, is jump on along with my son, he'll lead the way. I am so proud of you MICHAEL! YOU DID IT! WE DID IT! WAY TO GO! CONGRATULATIONS! YOU ARE A TRUE CHAMPION!!! We celebrated with an end of treatment party on the floor, with cake, family and GOOD friends. All the people that have taken care of Michael were in the same room together it was a great day and a nice way to start the rest of our lives. All these people are truly amazing and I love and admire all of you. THANK YOU! I can tell you this, in the past nine months of this journey I have met the most incredible,amazing, wonderful people and good friends that if I had not met, I don't think I could have done this. They are my hope and strentgh and I love you all so much, THANK YOU! The treatments may be over but Michael will follow up once a month in the clinic for brain tumor clinic. He will have brain scans (MRI) once every three months for the first year, on the second and third years he will have the scans done once every six months and fourth year will start annually. He still has a lot of work,it will be about a year of rehabilitation of gaining his strength and muscles. We will have fun doing this Michael has a plan of things to do, although I have become a bit of a germaphobic as Michael says, "my mother is hideous about germs so wash your hands and use sanitizer" he likes to say this to EVERYONE! I will keep Michael's web site and update since we still have some ways to go before we can really be "done" Please keep Michael in your daily thoughts and prayers and Thank you all so much for all the prayers and positive thoughts and support and hope.Its time for Michael to start the rest of his life he's 5 now threre's a whole lot to do.
GOD BLESS and LIVESTRONG!!

Always with Love & Hope
Jan and Family

Sunday, January 23, 2005 10:00pm EST

WAY TO GO PATRIOTS!!! on to another superbowl WIN!!!! CONGRATULAIONS MICHAEL!!!! tomorrow will be the LAST! chemo admission he is very excited. He has done so well this month his hair is starting to come in and he is just doing well even better with the Patriots win! We had a really fun day, the sky dropped two feet of snow up here in Lowell so Dad and the boys had fun outside shoveling. Michael and I went out to play too, he really had the best time with his snow paint and making snow angels. This was the first time Michael has been outside in months to play it was so great. He's also been riding his bike around the house and he really loves to do that. When we came in from outside and had hot chocolate with a giant marshmello he said "mom this has been such a great day! playing in the snow, riding my bike and drinking hot chocolate, thanks mom". He is such a joy! my sunshine hero. I am so proud of my son he is the star the brightess star. I LOVE YOU ANGEL!! Thank You all so much for the prayers and thoughts and support wish us luck for tomorrow! until then.
GOD BLESS and LIVESTRONG!!

Jan and Family

Sunday, January 9, 2005 6:04 PM EST

HAPPY BIRTHDAY to Michael HAPPY BIRTHDAY to Michael. He had the best birthday and we all had so much fun. 5 years old oh where does the time go! The Patriots birthday party was awesome. Grandpa Lanosa, and Grandma and grandma's friend grandpa, Auntie and Uncle John, Andrew and Michelle and Meemoo and the boys and me and dad all celebrated the day with our hero. I bought Michael a very special birthday present from just me to him. I told him when he fell a sleep I would put it at the end of his bed, so when he woke up it would be there. When Michael got up on Saturday morning and found the gift he came into my room with a smile that was so priceless tears immediately came to my eyes. He climb up onto my bed with the box and we opened the gift, and inside the box was a little head pillow, that has a sunshine with its rays over the pillow and it says you are my sunshine and then when you squeeze the pillow it play "you are my sunshine" the smile that came over his face was a memory we will share for the rest of our lives. He then hugs me and says "mom you know what the hardest part about being my mom is? watching me grow up" and that was when I really had to have a real good "happy cry" all before 7:30AM. The rest of the day was GREAT!! Michael did really well through his chemo admission and two more weeks untill his last. The MRI scans came back nice and clear Dr. Ebb gives a thumbs up. We are thinking very positive for Monday this will be when Michael's counts will be low and hoping not to get a fever. He has done really good the past four admissions. Thank You all for keeping us in your daily prayers and thoughts. GOD BLESS and LIVESTRONG!

Jan and Family

Saturday, January 1, 2005 8:33 PM EST

HAPPY NEW YEAR! and what a wonderful holiday season we all had. Santa was VERY good to all of us and Michael was such a joy with the excitement in is face. We really enjoyed our holidays and the smiles on all of our faces was just priceless. Its what we really needed. WOW! 2005 is here. we have a lot of milestones we are crossing this year and many this month. Michael will turn five on Saturday January 8th, I will be a year older on the 11th and Michael's treatments are over at the end of this month. We will celebrate Michael's birthday on Saturday and his request is a "New England Patriots" theme birthday and some corn on the cob (his favorite) in January! He really knows what he wants, he's silly. We are preparing to check into MGH on Monday the 3rd for the second to the last of his chemo admissions. Michael will also have an MRI done on his brain to make sure everything is going ok. He will not have another MRI until April. We are so fortunate to have such a courageous and strong boy, he truly is a ray of sunshine and always full of smiles. He's my hero! and he is almost done, way to go Michael!!! Please do keep Michael in your prayers for it is not over yet there still some ways to go. Thank you all and we wish you all a New Year filled with hope,peace and happiness. GOD BLESS and LIVESTRONG!!

Jan and Family

Monday, December 20, 2004

Santa claus is coming to town! we are so excited! Michael has sequester to my bedroom in fear he will get a fever from being neutropenic this week. He is taking NO chances. He is doing really well and is anticipating Santa's arrival. We have been reading lots of Christmas books as we wait for the special night. Uncle John and Michael track Santa on a special web site all of Christmas eve to find out where he is. The look on Michael's face is just priceless. As I shopped and hustled and bustled through the crowds and observed all the bah humbug of people, it just made me realize how important life is. Michael is a true miracle and I'm so thankful for his courage and strength. The next couple of weeks we will relax and enjoy our family and holiday and reflect back. We will ring in the new year with peace and hope and happiness. Thank You all so very much. Merry Christmas and Happy New Year!
GOD BLESS and LIVESTRONG!

Jan and Family

Monday, December 20, 2004

Santa claus is coming to town! we are so excited! Michael has sequester to my bedroom in fear he will get a fever from being neutropenic this week. He is taking NO chances. He is doing really well and is anticipating Santa's arrival. We have been reading lots of Christmas books as we wait for the special night. Uncle John and Michael track Santa on a special web site all of Christmas eve to find out where he is. The look on Michael's face is just priceless. As I shopped and hustled and bustled through the crowds and observed all the bah humbug of people, it just made me realize how important life is. Michael is a true miracle and I'm so thankful for his courage and strength. The next couple of weeks we will relax and enjoy our family and holiday and reflect back. We will ring in the new year with peace and hope and happiness. Thank You all so very much. Merry Christmas and Happy New Year!
GOD BLESS and LIVESTRONG!

Jan and Family

Saturday, December 11, 2004 6:49 PM EST

We are getting ready for the first of the last three admissions. We will go in on Monday. We had a great fun weekend wrapping gifts and baking cookies and making fudge. Michael loves to help in the kitchen. This morning I got up early and Michael, Justin and I made "potato Latkes" something new we never tried before and to try something our Jewish friends have on their holiday. They came out quite tasty! It was all fun and silly. As Christmas gets closer and Michael continues to open up windows on our Advent calender he gets so excited for Santa! I can't wait for Santa myself, its been a tough year for all of us and we have alot to be greatful for. I believe this Christmas will be a very special Christmas for all of us. Thank You all and keep us in your prayers.
GOD BLESS and LIVESTRONG!!!

Jan and Family

Thursday, December 2, 2004 6:08 PMEST

Michael did it again! he got through neutropenia with out a fever HURAAY!!! He is doing really well. He helped me bake today for his schools holiday fair. He still has to get the rescue shots till Monday. Then he will have a nice week off till the first of the last three admissions. I can't even believe we are this close, it almost doesn't seem real. We had a very nice turkey day quiet but really nice. We also got our Christmas Tree Michael thinks its 50'000 inches high (its 9 feet) and we decorated our house for Christmas. Michael is soooo excited for santa and he is so much in the spirit of Christmas, sining christmas carols and playing Joy to World on the organ. He truly is an amazing little boy he is just happy all the time. He will make my Christmas a very happy one with just his ways of making everyone smile and laugh, MY SUNSHINE BOY!! I will have new Pic's for next update till then. Thank You all and please keep the prayers strong.
God Bless and LIVESTRONG!!

Jan and Family

Sunday, November 21, 2004 8:00 PM EST

Michael is doing well. He will be going in for number three of six chemo admissions tomorrow. We are half way there! We did have a fun week. We celebrated Dad's birthday with yummie cake that Michael helped me make, and lots of presents! We also went to see the SpongeBob Square Pants movie in the theater. We really had a fun time and the movie was really silly! Then we celebrated another birthday, Michael's cousin Andrew he is 16! another fun time with lots of yummie stuff. Then tomorrow we will celebrate Michael's Grandma's birthday with a yummie piece of good ole MGH chocolate cake! When we come home we will then have another birthday to celebrate Dr. Albert he will be 10 (Justin). So Michael has been busy with movies and birthday parties, and lots of fun! He really is feeling good and this makes me very happy and does Michael. Well you all have a very HAPPY THANKSGIVING and please take a few moments to really think about what your thankful for. I'm thankful for my beautiful sunshine boy and that there is treatment to make him well. I am also thankful for all of you, all the kind words and well wishes and generosity you gave to my son and myself and family and all the prayers THANK YOU from the bottom of my heart!
GOD BLESS and LIVESTRONG!
HAPPY THANKSGIVING

Jan and Family

Monday, November 15, 2004 2:26 PM EST

Michael is doing really well. He did not get a fever this time after his chemo admission. He is really happy about this and so am I. So now we have 8 days untill he goes back for his next treatment and today we found out that his blood counts are up, so he will not have to get a rescue shot for the next 10 days he is so happy about this.
He is in good spirits and as always very happy and silly. Thats it for now. Thank You again for the continuous support and prayers.
GOD BLESS and LIVESTRONG

Jan and Family

Thursday, November 4, 2004 5:58 PM EST

Two down and four more to go, Michael did well this admission so far so good. He had some tests done an EEG and an echocardiogram. The EEG came back good so Michael is now being weaned of the antiseizure med he is on. This is a plus, subtracking meds. We got to spend sometime with Michael's primary nurse Jen, we haven't seen her in a while. Michael had a great Halloween we went trick or treating at MGH, the amount of candy the children collected was more then I have ever seen! (Thank You Anne,Marilyn,Heather) and everyone that made the day possible for the kids we had a great time! Michael had fun helping Dad crave his famous "Patriots" pumpkin what a challenge. He did a great job. we also got to get to school one day last week, Michael went in to have a school picture taken it was nice to see friends and teachers we miss it was a short visit but nice, Michael will continue the rest of the school year in Feb. So one day at a time Michael is back on the bone marrow rescue injections this is part of the chemo plan he is so brave he does it like a champ! Thank you all for your support and well wishes. Please keep the prayers strong they do send strength and please keep and your thoughts and prayers for Michael's Grandma Geri she is ill and really needs the power of prayer. THANK YOU and GOD BLESS
LIVESTRONG!

Jan and Family

Sunday, October 24, 2004 2:49 PM CDT

We are home! Michael did well and we got to come home Friday evening. He's a little weak and shakey this is due to the chemo and meds he's on. Otherwise he is doing ok. The week before Halloween is exciting for us, we have fun things planned. Michael is excited to trick or treat, which we will do at MGH with lots of other kids in house and out. They plan a really fun day for the kids and their families, we are really looking forward to this (look out for new pic's!!) and of course carving our pumpkins! we have about 9 days home until Michael's next chemo admission so we will enjoy this time and the rest of October. Until then, Thank You for your continuous support and prayers, and have a SPOOOKY HAPPY HALLOWEEN!!!!!!
GOD BLESS and LIVESTRONG!

Thursday, October 21, 2004 1:24 PM EST

Well as the Red Sox's were winning their victory Michael became neutropenic and we headed to MGH for a late night admission. He is ok and has not had a fever since about midnight last night. He will have some antibiotics for precaution to make sure he doesn't have any infections of any kind. We should be home either Friday evening or Saturday sometime. He is in good spirits and is not as sick from chemo as before, thank God! Thank you all, keep us in your thoughts and please keep the prayers coming we are almost at the finish line. Thanks and God Bless
LIVESTRONG!!!

Saturday, October 16, 2004 5:24 PM EST

Michael did a great job with the first of six chemo admissions. We were in and out of the hospital in about 28 hours total, not bad. Michael's MRI scans came back fine Dr. EBB says "Beautiful Brain" At home Michael is experiencing some fatigue which has to do with radiation side effects. When this happens he just can't do anything but sleep and sleep he has no energy not even to eat or drink which becomes a struggle. He may also get neutropenic with the chemo, my fingers are crossed he doesn't, he had such a hard time with it in the spring. I don't want him to have to endure that again its just awful.
I do have to give him his bone marrow rescue shots again. He is so very brave. Thank You numbing cream. Its not so bad for him anymore its worse for me I just hate it. His sprirts are always up and he is always happy and cheerful makes my day every day he definitely starts my day with a smile or giggle. Thanks everyone for the well wishes and please keep the prayers coming strong. Thanks and GOD BLESS
LIVESTRONG!!

Jan and Family

Sunday, October 10, 2004 1:33 PM EST

Well the last 25 days was such an awesome break for Michael and myself. We did alot of fun things. Although Michael has been battling a cold for the past week so we were not able to go to school. Tuesday is the day we will head back to MGH for (as Michael calls it a new adventure or journey) he will start the last phase of his protocol this will last until the end of January 2005 and then the treatments are over. Michael tells me that we recycle braveness, he gives it to me when I need it and then I give it back to him when he needs it, he is such a smart little 4 1/2 year old.I am having a hard time with getting back to the "hospital routine" since we have been out for a couple of months. Its been so nice to have somewhat of a "normal" life style. My weeping has started again in the wee hours just the anticipation of going back and knowing what my son has to go through I just get sad and angry, but I know this is what needs to be done. This will be a difficult time for Michael and our family, going through the holiday season, but I know my son will always pull me through and make the best at what ever is given to him. He is an amazing little person. Well again Thank you for your continued support and well wishes and please keep the prayers coming strong we will need them THANK YOU!!
GOD BLESS and LIVE STRONG!!

Monday, September 27, 2004 6:29 PM

Fall is such a beautiful time of the year. Michael and I and family have been enjoying the fall days. We went applepicking and ate a lot of apples! Michael and I and Auntie suzanne and Justin did the Walk of Hope with MGH. That was a great day and Michael finished and crossed the finish line, we do have a picture, I will post it next change of pictures. Michael continues to do well in his physical therapy and does his exercises. He will go to school this week a couple of days. We are planning to get our pumpkins on the weekend and eat messy caramal apples yummie!!! We are enjoying as much of the beautiful days as we can before he goes back in. Thank you all for the continuous support and well wishes and all the prayers thank you so much. GOD BLESS and LIVESTRONG!

Jan and Family

Thursday, September 23, 2004 6:26 PM EST

Hello! Michael, DID IT! he successfully completed 6 weeks of Proton beam radiation. We all celebrated and took Michael out to the Rainforest Cafe for dinner, we sat at the gorilla table. We had a lot of fun. Michael had his first day of school on Wednesday the 22nd. What a beautiful fall day to start. He did very well going at his own pace. I was a bit weepy seeing him back at school and seeing him trying to be a part again. We did have a fun day. We will try to go to school next week as much as he wants. We have a nice three week break from all treatments, which is so nice. He will start the last phase of the protocol which will start on October 12 he will be admitted to MGH. He will then be admitted every three weeks until the end of January. These admissions are chemo admissions. The next five months will be tough! So we will make the next couple of weeks as fun as possible. We are going to go apple picking and for a hay ride at our favorite orchards and on Sunday we are going to the MGH cancer for kids walk. This will be a fun weekend. Michael is doing really well he has gained alot of strength back and his spirits are as happy as ever, he is such a strong boy. Thank you Rachel and everyone at the Protons center and Sara do your homework:} we miss you! Again thank you all for the support and well wishes and keep the faith and prayers coming our way. GOD BLESS and LIVESTRONG

Jan and Family

Sunday, September 12, 2004 1:17 PM EST

Hello,
Finally got the computer fixed! (thanks Bob!) Well we have been having some fun. We all took a road trip down to Grandpa and Grandma Geri Lanosa's house we had a nice visit and with our cousins too. Then on Labor Day Monday we took Michael and the boys to NFL pass, punt & kick in Boston. We realy had a fun fun time. Michael was really excited to play as you can see from the pictures. I also took Michael to his nursery class and he is very excited to get back to school (wearing his new school shoes of course) he will start school on Sept. 22. This weekend our church asked us if we wanted to take part in the family mass. Michael was very excited about walking to the altar with Father Tom, Michael also helped bring up the gifts. Justin did a reading and I did the prayers of the faithful. It was really nice. Tomorrow Michael will start the last week of his proton beam radiation treatments, Friday will be his last day. He will then get a break for three weeks. On October 13th, Michael will start the last phase of his treatments, which will last five months. He will be admitted in the Hospital every three weeks. He will receive Chemo through these admissions. It will be very tough through these next five months. Michael is a strong and brave boy and I know I will pull him through as he will pull me through. He is my sunshine and my hero! Again thank you all for the well wishes and support we continue to receive, and the prayers. Prayers, especially through the last phase of this journey, its sometimes the power of prayer that helps get us through.
GOD BLESS and LIVE STRONG!!!

Jan and Family

Wednesday, September 8, 2004 8:39 AM CDT

Jan's computer is not working.
Watch for an update soon with new pictures.
Everyone is doing well, Michael and family had a great weekend!

Sunday, August 29, 2004 6:33 PM EST

Well another fast weekend, and a VERY HOT one! we kept Michael in this weekend, he would have melted if he was outside. We did inside things. Saturday we did go to church, we went to a special mass, anointing of the sick. It was a very beautiful and meaning full mass. Father Tom anointed Michael and I was so overwhelmed with emotion. Michael says "mom why are you crying?" I tell him its happy crying. So he hugs me in my lap for a while and then says "mom when are you going to be done happy crying" he is so cute and of course this makes me laugh and smile. Tomorrow we head back to MGH for treatment #18, 12 to go. Michael's red cells are a bit low so he will get a transfusion on Thursday this week. This will give him the energy he needs for his body to keep going through treatments. Again, Thank You all for your support and prayers and well wishes, they really help us especially on hard days like Mondays.
GOD BLESS and LIVE STRONG!

Jan and Family

Sunday, August 22, 2004 7:45pm EST

It was a fast and busy weekend. Michael is doing so well. Back to MGH tomorrow. Michael will start treatment 13, 17 more to go. He is responding well to it. Our weeks are busy and they do go by quickly. Mondays are a little rough for Michael but once we get through that day it seems to go ok. Michael had a fun weekend, our cousins came to visit and we celebrated Josh's 12th birthday. FYI September is coming in a little over a week. September is Childhood Cancer Awareness Month. Please wear a gold ribbon as a sign of hope and awareness and please visit www.candlelighters.org to read more about childhood cancers. There are also gold ribbon car magnets to purchase. Thank You everyone for all the support and prayers and well wishes we continue to receive.
LIVE STRONG! and GOD BLESS.

Jan and Family

Sunday, August 15, 2004 7:09 PM EST

Week one is done. Michael got through it like a true champ! I myself did ok as each day passed. Five more weeks to go and three more days of sedation. Michael can go the next 4 weeks without the "sleepy juice" he is amazing. We had another great weekend Grandpa Lanosa and Grandma Geri came up and we celebrated Grandpa Lanosa's birthday with a New York Yankees and Boston Red Sox cake that was fun. Grandpa M. also had a birthday on Saturday. We had a weekend full of Birthdays and Josh's is this week. Michael really had a fun time. He is doing well and is getting as back to normal as normal can be. We are starting to get mail from School and getting ready to get back to school. Michael is excited about this. He will probably be able to start school toward the end of September. Still one day at a time. Thank you all for the prayers and well wishes we really use them for our strength everyday. Thank You and
GOD BLESS.

Jan and Family

Saturday, August 7, 2004 9:20 PM EST

Hello,
Michael has started his first and second radiation treatments,28 more to go. It was a couple of long days at the Protons Center. Michael seems to be doing ok through them. I myself had a hard time with it. I just wept the two times. Its the adjustment to the next phase of treatments. Its scarey sometimes with each new step to recovery. Michael has his "sleepy juice" each time and is always in good spirits. He also has started to take oral Chemo through the radiation and is being tappered off one of the antiseizure meds. He will have a small break after Protons and continue Chemo through early spring. This weekend has been fun so far. We took Michael bowling for the first time and he scored 122. He beat us all,we had the best time,he really loved it! I took Michael to the Belmont Fire Station to visit some friends and he of course jump right on to a truck he was thrilled. Sunday we will go to a pool and BBQ party that the pedi Hemo/Onc clinic is hosting at MGH, Michael is really looking foward to it. I think more so because Dad told him he was going to throw Mom in the pool! He is always so a happy, I am truely blessed with such a beautiful son,he truely is the sunshine of life...My life,and I think each person he meets through this "journey" also thinks this. He is an amazing little boy named Michael Lanosa and he's my son. THANK YOU again for all the prayers and good thoughts and well wishes please keep them coming. Prayer is strength
GOD BLESS
Jan and Family

Check out the new pictures!!!

Sunday, August 1, 2004 6:09 PM EST

Hello everyone! Well its been a great couple of weeks filled with some summer fun! First I'd like to thank my cousin Jeff and my Dad (Grandpa Lanosa) for the golf tournament they hosted on July 23rd. It was a great success, even with some rain showers. Thank you to all that attended and thank you to all the golfers and Thanks Jeff and Dad I LOVE YOU!! Michael is feeling really good we did a lot of fun things, we went mini golfing Michael scoring a par 59 on 18 holes not bad, I scored a 54! then to a great 50's diner for lunch which he loved. We also went out to one of his favorite BBQ resturants. Swimming at a good friends pool as he sat in a floater chair and sipped lemonade-icetea like a true prince. The highlight of the week was a trip to Gillette Stadium to watch the New England Patriots training camp. Michael was shouting as loud as his voice could go "yo Tom Brady yo Tom Brady" several times and actually got Tom Brady's attention. Tom turned around probably wondering where this cute voice was coming from, of course we were all waving fiercely at him. That day ended with a trip to the pro shop for some souvenir's. What a fun day that was! Michael has been active in his physical therapy and really regaining his strength and balance. He will be taking up swimming which is great to gain strength. He is truely doing well, he is so strong, but he still has a lot of work to do and alot of treatment left to recovery. Tomorrow we head back to MGH for an MRI and a hearing test. Wednesday he will start radiation for six weeks, so as Michael says, on to the next adventure at MGH. His spirit is strong and happy, always happy. He is amazing. I think I get more freaked out then him sometimes, at just the thought of whats next, but he just tells me "mom don't worry about it". Again Thank You everyone for your generous gifts and prayers and well wishes please keep the prayers coming we still have a ways to go. New pictures next update. GOD BLESS

Jan and Family

Thursday, July 22, 2004 3:00 PM EST

We are now about to start a two week break, untill Michael starts Radiation Treaments. Tuesday and Wednesday we spent at MGH planning for the "next adventure" as Michael calls it. This will start Aug 2nd with an MRI and then on Aug 4th he will start the treatment which will go for six weeks everyday. Michael is doing really well since we got home. Tomorrow will be a week and two weeks post op. He is regaining his balance and strength through physical therapy and exercises I do with him after P.T. He is still weak and tired and likes to rest alot. Hopefully we can try to get some fun things done in these two weeks, like swimming or even a beach trip with a picnic supper. He hasn't complained once about anything except for needle pricks or the taking off of bandaids. He is truely an amazing little boy with the bravery and courage and strength he has. He still keeps me going. He has not lost his spirit and when mine is down, he seems to lift it in his gentle but silly self ways. Michael is my true hero. Again thank you all for your generous gifts and all the prayers, keep them coming strong the power of prayer is very strong and we still have a ways to go THANKS and GOD BLESS.
Jan

Saturday, July 17, 2004 4:35 PM EST

WOW! WE DID IT!! Michael did it!! we are home a week ahead of time, I thought we would be in the hospital at least another week. Michael is doing so well, he is the bravest boy, he makes me brave as we go through this journey. He says to me as he is waiting in the O.R. "mom don't worry" as I'm explaining some things to him before I kiss him and he falls asleep with sleepy juice. AMAZING I am a little nervous, because he is so frail and needs to rest most of the time and I would never want to witness my child have a seizure again it took the life right out of me. So being home so early is a little frightening, but also a good thing too! He still has a long road to go with treatments, one victory at a time, one day at a time. He will improve with some work with physical therapy, and he will get his strength back and his body will heal. He is soooo STRONG! Michael will start Proton beam radiation in early Aug. That will go for six weeks everyday M-F. The power of prayer is so strong. Thank you everyone! thank you so much! and I really have to say Thank God Jan(Michael's grandma) she is right there in every crisis because I really believe I'd have been admitted a few times if she wasn't. :} The support we have is so strong and that is what keeps us somewhat sane through this. Keep the prayers coming and GOD BLESS

JAN

Friday, July 16, 2004 10:40 AM CDT

Great News!

Michael's going home today!

Wednesday, July 14, 2004 8:56 AM CDT

I just heard from Jan this morning.
Here is a quick update on Michael's progress.

Michael is up and talking. His first request was for candy, specifically, chocolate candy. He sure does love his sweets, hmmmm I wonder who he takes after.
The MRI shows that the tumor has been completely removed!
Michael will most likely be out of PICU and going up to Ellison 17 later today or early this evening.
Please keep those prayers and well wishes coming.
Love to all and God bless.

Monday, July 12, 2004 2:37 PM CDT

I'm sure everyone has been nervously awaiting this news.

Michael's operation on Friday took a little over 9 hours to perform. The doctor's said Michael did wonderfully. He came out of anesthesia talking up a storm. The first words out of his mouth were, "Where's my mom, I have to ask her something." As you can imagine everyone was elated. He then continued talking for the next 16 hours NON-STOP. The doctor's believe the steroids he was given during the operation may have caused it.
There was a minor set back on Saturday evening. Michael had a seizure and was given a rash of medications (I’m not sure of all the names so I’m not going to even attempt it) to make sure that he didn’t experience any more seizures but the effects of the drugs made him heavily sedated. He’s been in and out of sleep since late Saturday evening with the assistance of a breathing tube. An EEG, CAT scan and other neurological tests have been performed and they say he is having normal brain activity. The MRI he had indicates that they successfully removed most of or close to the entire tumor! Jan says he is resting comfortably and is in stable condition. He is communicating by squeezing your finger or giving the thumbs up sign. He will remain in PICU until he is well enough to go up to Ellison 17, which should be another day or two. Please keep those prayers coming and God Bless.


Auntie Suzanne

Thursday, July 8, 2004 7:39 PM EST

Well this is it, I'm about to settle down with Michael and go to bed. He has had a great day, he made a "good luck" cake with meemoo and we had it after dinner. He played with his brothers and is happy knowing his port a cath is accessed and doesn't have to deal with it tomorrow. He knows he is having the "boo boo" taken out of his head, but the fear of the port a cath is what has him stressed the most and that is already done. I myself am trying really hard to not fall apart in front of Michael so far so good. He has slept with me last night and will tonight. It will be a long time before I can hold and cuddle with him. The surgery is on for 8 LONG hours starting at 8am. We will be in the PICU for a few days and then be up on Ellison 17 some time next week. This is huge and I'm praying very hard and trying to have only positive thoughts. Thank you everyone and keep the prayers coming especially Friday Michael and I will need them the most. Thank you and GOD BLESS

Jan

Sunday, July 4, 2004 8:21 PM EST

Happy 4th of July!! We really had a great weekend and Michael is feeling good. He is in good spirits and enjoyed a BBQ and an all American cake and he sang Happy Birthday to America, very cute! and then lighting a few fireworks off in the yard with his brothers and dad, and some sparklers blue,green and red, he really likes them. We took a day trip to Grandma and Grandpa's in New Hampshire and that was a fun day too. We really wanted Michael to have a really fun weekend before we head back to MGH for a good part of July. Five more days till the surgery, I'm really shakin in my shoes. Everyones well wishes and kind words and prayers always help. Please keep them coming strong especially these next few days and weeks. Thank you Happy 4th to you all check out the new pictures in the photo album, I wish I knew what I was doing so they weren't so big. Oh well he is still the cutest boy!!
GOD BLESS.
Jan

Thursday, July 1, 2004 5:59 PM EST

Today we spent the day at MGH. Michael did need to get some go go juice as Sharon says, thats Michael's nurse in the clinic. The transfusion takes just the day, beats over nights. Not that we don't miss our Ellison 17 nurses and Doc's. The "red juice" will give Michael the energy his body needs, so we will have a fun weekend and he will be full of energy as he is this minute, screeching and chasing his brothers around the house! he's having fun and thats what counts. Its really awesome to see him laugh and smile and be silly. We have such a hurdle to get through next week. One day at a time and lots of prayers. Thank You everyone and GOD BLESS.
Jan

Monday, June 28, 2004 6:45 PM EST

It was a nice weekend! Michael is doing well. His counts are dropping a bit, he will mostly likely go in for a blood transfusion between now and Thursday when he will be at his lowest. I hope he will be ok until we have to go back in the hospital for the surgery on July 9th. This past Saturday my sister Suzanne and my brother-in-law John held a golf benefit with a backyard BBQ, with the help of close friends and family. It was a great day for Michael he had a good time and the day was a great success, Thank You Sue and John I Love You! and THANK YOU!! to all the golfers and none golfers who came to show support for Michael and our family. I appreciate your generous gifts and your time. 10 days till the surgery please keep the prayers coming, my knees are feeling weak each day the 9th gets closer. Again thank you all for the support and kind words and well wishes you send to us. GOD BLESS
Jan

Thursday, June 24, 2004 6:07 PM EST

We are home! Michael is doing well and did good through the chemo treatment, so far so good. Hopefully he won't have to go back in for neutropenia. This visit to MGH was fast and not to bad, we got to see Jen's new diamond ring and we got to see Dr. Raffi before he moved to Calif. Thanks everyone on Ellison 17!! I'd like to thank my cousin Christine and her friend Liz in CT. for the awesome job they did for the pasta dinner. I hear the turn out was a real success and she did a wonderful job! THANK YOU I LOVE YOU!!! and thank you all, for taking the time to go and thank you for the generous gifts. It would have been nice to see everyone. Please keep the prayers coming, we still have a long battle ahead of us and a huge hurdle to get through with the surgery. GOD BLESS JAN

Sunday, June 20, 2004 8:25 PM EST

Happy Father's Day! and a happy day it has been. We spent the day outside playing and we had a BBQ. Grandpa Lanosa drove up for the day and he and Dad had a great Father's Day. The weekend was perfect. Michael felt fine the "red juice" did wonders, gave Michael the extra push he needed. We go back in to MGH tomorrow morning for chemo infusions this will be the last one until after Michael's surgery which has been scheduled for July 9th. We really enjoyed this past weekend it was beautiful weather, and the sun was shinning just like my little sunshine. Thank you all for the prayers and continued support. July is going to be a really rough month for us so all your support and prayers will give us the strength to be strong and brave. Thank you and God Bless Jan

Thursday, June 17, 2004 7:51 PM EST

Yesterday, when we got home from Michael's weekly clinic visit and I had put him to bed, I received a phone call from Michael's Doc "Michael's red cell count is low he needs some cells" Oh know I said, he will have to come in to the clinic in the morning to get a transfusion. So this morning I have to tell Michael we have to go back in to the clinic to get some "red juice" as he calls it, and to access his port-a-cath, he says to me, "thats ok mom ,I'm a brave boy". So with that I smiled and hugged my son and we started our day, back to MGH we went. I didn't realize that he was that pale until an hour or so into the transfusion, Michael started to become pink, even his knees. It was really amazing, the color and energy he had regained in 3 1/2 hours of this treatment. When we got home and had a bowl of ravioli's he and Justin were chasing each other around the house. I guess an afternoon in the clinic is better then a 5 day stay in the Hospital from neutropenia. Definite surgery date is July 9th this is where I need to become brave. Thank you all for everything. GOD BLESS Jan

Tuesday, June 15, 2004 5:45 PM EST

Hello! Michael is still doing just fine. We will go to the clinic tomorrow for a weekly check up and a weekly chemo treatment and then return home to enjoy the rest of the week. Being home has just done wonders for both of us and the rest of the family. We will go back in for another 4 days next week for the chemo infusions and this will be the last phase of this plan, this will be week 10. I do have some surgery dates, but I will let you all know when it is confirmed, this is the next phase of the treatment plan. I just have to go one day at a time. Auntie Suzanne and Uncle Johns pool is open so we are looking forward to getting there to go swimming. Michael thinks he is going in but burrrrr, we'll see. The postcards are still coming, today we got one from China! and our map is getting full of map pins, its a lot of fun. Again thank you for all the support, kind words,prayers,cards and generous gifts they come every day and we are so thankful. God Bless Jan

Friday, June 11, 2004 8:51 AM EST

Good Morning! and a good morning it is. Michael passed through his neutropenia stage which means he has maintained his cells through his last Chemo treatment. He is very excited about it, because he does not have to get a shot in the morning, that I have to give to him. So we will be home for awhile before our next admission to the hospital. So we are going to have fun and enjoy our stay home untill the next phase of Michael's recovery plan. We are both in pretty good spirits. Michael's brothers Jefferey & Josh did a fund raiser at their school for Michael, and did such a great job advocating for Michael, it was a success and I'm very proud of them! Again Thank You to all, for the support and cards and generous gifts we receive everyday. Thank You and God Bless Jan

Tuesday, June 8, 2004 7:59 PM EST

Hello,
Today its been 2 months since Michael's been diagnosed.
Michael is feeling ok today, we went to MGH and had a weekly chemo treatment done, and he checks in with his Doc lookin pretty good. We are at day 7 from the inpatient infusions, so we are carefully watching Michael for any fevers. So we'll be doing indoor activities. He still keeps his spirit up even though he his tired from the chemo. He is such a strong brave little boy, and I'm really proud of my son, for what he goes through, he is such a champ! We have been having a fine fun 4 days at home so far. Thank you everyone for the continued support and all the post cards, we get postcards from all over the world its amazing! Please wear a gold ribbon as a sign of hope, in honor of Michael and other children with this disease. Thank You and God Bless.
Jan

Saturday, June 5, 2004 9:07 PM EST

We are home! the treatments went ok, so far so good! Last night I went to a music benefit called "Music For Michael"
our wonderful family from the Waldorf School put it on. It was the most beautiful music. Marybeth (Michael's teacher) and Lucy played harp and Brigitta played the recorder and the sound was just beautiful. Aline who is sooo talented played piano and she is truely an amazing person. She wrote a piece called "Strength" and dedicated to Michael. I want thank you for that evening I'm still teary from it. My family and I really had a wonderful evening, THANK YOU!!
I took Michael to his end of the year nursery picnic today and he got to hang out with his teachers, and all his friends, he really enjoyed himself. He had a great day and he so needed it. It was really nice to see all our friends we miss so much. Again thank you all so much for everything, the smiles on Michael face today was really a joy to see and he felt so good. God Bless
Jan

Monday, May 31, 2004 8:49 PM CDT

It was such a great week to be home. Tomorrow we are back to MGH for a 4 day infusion of chemo treatments. Michael is feeling good and I'm sure that he is recovered enough this time to start the next treatment. We enjoyed the sunny days and home cookin. Michael also has a couple of new friends. He has a family of 5 crickets and a Betta fish he named "purple blue" so this to has kept him busy. We laughed alot this weekend and it felt sooo good. We took some new pictures and they are in the photo gallery. Thank you for all the get-well cards and postcards, we pull our strength from all the kind words we receive and take it day by day. Thank You and God Bless.

Jan

Saturday, May 29, 2004 8:00 PM CDT

Thank you sunshine!!! Finally! we could go outside today. Michael is feeling better, since we got the super cough medicine. He has had a pretty good week home. He has had energy and plenty of rest and yes he's eating! and I myself feel well. There is no place like home. Michael indulged in chinese food with chinese pretzels tonight, and he enjoyed it, then topped off the meal with a bowl of m&m ice cream yummie!. Tomorrow we will spend the day at home doing home things and Michael is planning to go out and play with the bubble blowing toy and riding his bike. Hopefully it will be as good a day as the past few. Again thank you all and God Bless!!

Jan

Thursday, May 27, 2004 8:10 PM CDT

Well today was a really good day for Michael, we went to MGH yesterday, Michael had to be checked and have a chest x-ray, because he has a slight cold. He checked out ok and was given some super cough medicine and that seems to be working fine. The sun finally came out, so hopefully we will have a nice weekend to play outside a bit. Michael and I will have to check back in to MGH on Tuesday the 1st for his 4 day chemo treatments, so we really hope to enjoy some sunshine since the week was burrr and rainy. Although we did enjoy sleeping in and some major cuddling going on!! which is always a joy. Thank you and God Bless


Jan

Wednesday, May 26, 2004 8:05 AM CDT

RAIN RAIN GO AWAY!!!!!! Michael and I want to go out and play! Although its been raining the time we have been home has been good. We are having a good week so far. Michael feels good but has a slight allergy going on. We had one outing, Jeff and I took Michael to the up down up down store (McDonalds) for lunch and to the gorcery store. Grandpa Lanosa and Grandma Geri came to visit yesterday, we had a nice dinner and celebrated Grandma Geri's birthday with gifts and strawberry short cake, yummie!! Today we will do inside rainy day activites. We are hoping we will have the weekend home before Michael goes back to MGH for another 3 day chemo treatment. That will be good for Michael to get the extra time to really recover from his last treatment. I want to again, thank everyone who is wishing us well and the postcards and get well cards and generous gifts that we receive. Thank You and God Bless

Jan

Tuesday, May 25, 2004 1:53 PM CDT

Well, it's been a few days since the last time I updated the site...Michael came home in the early evening on Sunday. He was so excited to be home! Yesterday he spent the day running some errands with Jan and Jeff which pooped him out. Today, he relaxed at home with Meemu while Jan ran some more errands. Grandpa Lanosa and Geri are coming up for the afternoon. Michael will be returning to MGH either Monday or Tuesday to continue with his treatments.

Suzanne

Saturday, May 22, 2004 1:00 PM CDT

Hi,
It was a long day yesterday waiting to have the MRI. It was around 5:30 when Michael finally went in for the imaging. The results of the MRI show a 15% reduction of the tumor!
Michael is expected to go home tomorrow!

Suzanne

Friday, May 21, 2004 8:52 AM CDT

Hello everyone,
Today, Michael is going in for a routine MRI (week 6) to evaluate the tumor and to see if the chemotherapy is shrinking the tumor, also scheduled today is a hearing test to make sure he isn't experiencing any adverse effects from his treatments. Michael is anxious to go home, which may be either tomorrow or Sunday. He's had a rough week this week because of the Nutrapenic (sp?) but should be on the upswing again soon. Next weekend he is scheduled for his next round of extensive chemo treatments so hopefully he enjoys some nice weather and the comforts of home before he returns to MGH.

Thank you all for your time, love and support.

Suzanne

Tuesday, May 18, 2004 11:19 AM CDT

Hi,
Just a quick update to let you know that Michael is back in the hospital. He was running a fever Sunday night so they headed back into Boston. He had a blood transfusion again on Monday morning. Jan said he's very tired, they're both very tired. They should be back home sometime on Thursday.

Suzanne

Thursday, May 13, 2004 10:14 PM CDT

Hello,
We are home! got home on Tuesday and so far so good. Michael is doing ok, he is a little weak but telling his silly jokes and being his silly self. Today we had some friends from the Waldorf School, (Michael's School) and our friends brought Michael the most beautiful gift, its a quilt made by all the children and teachers in his nursery class each child had a cloth square and colored a sunshine on to them (Michael's cubby symbol in a sun) and then it was all stitched together its the most beautiful quilt I have ever seen! Thank You so much it means so much to Michael and I its just awesome!! Tomorrow we go to MGH for Michael's weekly chemo treatment. Michael is such a strong brave boy he tells me we make each other strong and brave, inside I'm so scared. He asks Jesus every night to help Mom and Michael to be strong and brave and to be a good boy the next day and for Mom to be a good girl :} Thank you everyone! and God Bless Jan

Monday, May 10, 2004 1:30pm

Well we are still at Mass General, we will be going home tomorrow morning for sure! Michael's been feeling ok and we are anxious to get home. Mother's Day was ok, Michael painted me a beautiful picture of purple lilac's which are my favorite, and Grandma brought in a large bunch of fresh lilac's and our room smelled so wonderful! We then indulged on oreo cookie ice cream and watched the finale of Survior. This morning Michael had his last treatment for this visit and after a small rest he was asking for chinese food! Thank goodness Auntie Suzanne brought some in yesterday. He feasted on meat on stick, chicken wing, rice and several dry noodles (chinese pretzels) dipped in duck sauce fear factor style. PS Jeff, Jefferey and Kenneth came in and and all three have no hair!!
Jan :}

Thursday, May 6, 2004 9:56 PM CDT

Today was a great day, Michael and I started with a trip to the grocery store which he loves. We then packed a picnic lunch and went to the park for a picnic with grandpa Lanosa and meemoo and to enjoy this beautiful warm day. We also brought Michaels bike, and he decided he'd like to ride the bike home, while I walked along side him with meemoo and grandpa following in the car behind us. We spent the rest of this warm day playing in the yard. We will go back to MGH for a couple of days for some more treatments. I would like to thank all of our family and friends and to you that we don't know, for the kindness and support the cards the prayers and just for the kind words, It helps me get through one day at a time. Today in the mail I received a priceless memory from my Auntie Connie that belonged to my Grandmother when I opened it, it made me cry then smile and laugh and then cry again. The piece was a statue of the Blessed Virgin Mary my aunt gave to her 53 years ago on Mothers Day. I got a warm feeling in my heart and knew my Grandma was with me
Thank you Jan

Thursday, May 6, 2004 8:16 AM CDT

What a wonderful visit Uncle John and I had with Michael last night! Michael looks great and was enjoying his big bag of treats from Grandma Lanosa who also came up for a visit and to stay a few days before Michael returns to the hospital on Friday.

Today looks like the perfect day to venture outside and get some much-needed fresh air. Meemu (my mother) bought Michael some special bandana’s to keep Michael’s head warm now that he has no hair. Just like Grandma (Janet) said, “Don't be shocked by M's appearance - he is pretty thin and bald, but those blue eyes do sparkle!!” Boy, Do they ever!

Suzanne (Auntie)

Tuesday, May 4, 2004 11:31 AM CDT

Today is a good day!

Michael is off the GCSF shots - the shots are to trigger the bone marrow to produce white blood cells.
Michael's counts are good today. The doctor said Michael can venture out - a trip to the store, McDonald's or to go outside and play in the yard....brrrr! It's a chilly day out there today!?!

Michael's been riding his tricycle around the house so he's getting his exercise one way or another.

Suzanne

Monday, May 3, 2004 7:36 AM CDT

Michael returned home on Saturday after making an exciting trip to the helicopter pad at MGH. The Med Flight crew stopped by and invited Michael to visit the pad where incoming critical patients are brought in via helicopters. The pilot of the Med Flight crew is a woman!

All is going well at home, Michael has officially lost his hair.

Michael returns to the hospital this weekend to undergo intensive chemo treatments, he'll be in the hospital for four days during this infusion.

Thursday, April 29, 2004 8:55 AM CDT

Good morning.
Last night was an emotional night for both Michael and Jan. Michael asked to pray with his rosary beads and asked Jesus to help his mouth sores get better and to help him be a brave, strong boy.
Michael said to Jan, "I have to kiss this guy." Jan told Michael, "Honey, that's Jesus." Then he told Jan he loved her so much he could cry and sang, "You are my sunshine, my only sunshine."

Jan met a woman, Nicole, who's son, Luke, is also being treated at MGH for a brain tumor; she has been quite an inspiration to Jan. She is the one who directed us to this web site to communicate to family and friends about the phases of Michael's progress. She emailed me the other day with these beautiful words about life's journey and where it may lead us.

You wait your whole life to travel to Italy. Finally, you make all the reservations, you collect all the brochures and tour guidebooks, and you even learn some of the language. You board the plane all excited. When you
land, the pilot announces, "Welcome to Holland". Shocked you stutter, Holland, what??? I am supposed to be in Italy. I have all the guidebooks, the maps, and I even know the language. But soon you realize that Holland is beautiful. It has tulips and windmills and you start to collect new maps and learn a new language. It will never be Italy, but Holland can be a beautiful place to live. So, please let Jan know that we are thrilled to have her living in Holland with us. We will be happy to show her around and take her to visit the windmills and remind her to stop and smell the tulips.

Take a deep breath, a big sigh....

Michael's grandmother, Janet, suggested that we start a post card campaign for Michael - she's telling everyone she knows to send him a postcard from his or her travels. She also suggested a big world wall map where he can mark every place he gets a postcard from.... so start traveling and sending out those postcards to Michael.

Well, that about covers it for now.

Suzanne

Wednesday, April 28, 2004 8:03 AM CDT

Thanks Grandma for the update!
(see Janet's entry in the guestbook)

Tuesday, April 27, 2004 1:28 PM CDT

Dear Family and friends,

I'm updating this site on behalf of my sister, Jan.
She is aware of all the thoughtful words, love and prayers that you have submitted via the guestbook. I printed out the pages for her to read as she has yet to visit the web page.

As of last night, Michael had to return to Mass General Hospital. Michael was running a fever and not drinking or eating. He was quite listless; this is attributed to nutrapenic (sp?). It is the effects from the chemo that wipes out all red and white blood cells. He is in the process of receiving a blood transfusion to increase his counts. He should be returning home in a couple of days.

Wednesday, April 21, 2004 8:16 AM CDT

This page has just been created. Please check back for additional updates.

Click here to go back to the main page.

----End of History----