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Hi Cari, My heart goes out to you and your family. Disease of any kind is horrible on a day to day basis. My soon-to-be 5yr. old grandson has Tubular Sclerosis. He has non-malignant tumors in his brain and heart. A very rare genetic anomaly, he has several kinds of seizures. Although many meds. have been tried, they do not prevent all of them.
Although this condition is different from your daughters, it is a constant in all of our lives. Wyatt, my grandson is a tall, strong boy. He does not speak and has difficulty with eye contact. His diet is extremely limited to protein and fat with almost no carbs. and sugars.
I think of you often and hope there is a break in research that will improve the quality of life for all disease ridden patients. Let me know when your are in the Naples area. I'm still here.
Mary E. Cornish <mecornish@gmail.com>
naples,, NY U.S.A - Sunday, September 4, 2011 3:58 PM CDT
Amazing Job on the WALK! I wish I knew about it before it was over, I haven't been receiving updates for some reason from caringbridge. Glad to see all is well. Sorry we have not been in touch, we do think of you often though Carrie... Hope you have a safe and fun holiday week end! hugs from the Adams'
k adams
Webster , ma - Sunday, May 29, 2011 8:45 AM CDT
I'm voting 3 times a day... all these children are so precious. Thinking of your family today.
Heather Gould
Edmond, OK United States - Sunday, January 23, 2011 9:24 AM CST
Hi Aufman Family,
Thank you for sharing the story of your journey as well as Dylan with me! I feel lucky to have him as a part of my daily life! You are an inspiring family.
Kate <Katevkhelman@gmail.com>
Sudbury, Ma - Monday, December 6, 2010 9:08 PM CST
Hi Cari family,
Thank you for sharing your story to me. I really appreciate it. You guys are awesome. I love when you guys are smile and spend family time together. One day, miracle will happen to your family. I don't know what is it? But i really believe it always happen with the people who has a good heart and try to do the best and the right things in their life. As long as, you guys don't give up.. God bless your family.
Sky <aungaung@hotmail.com>
Natick, MA USA. - Wednesday, September 8, 2010 9:40 AM CDT
I wish you the best of luck with Cari, she seems like a delight, which probably has alot to do with caring parents. I hope to meet her someday. I would like her to share her stories with me.
Lynne Bonfilio <lbonf@hotmail.com>
Maynard, ma us - Tuesday, September 7, 2010 1:38 PM CDT
Wonderful entry, Cari. I know what you mean about birthdays. Wavey's is still 2 months away, but I was up last night anticipating it. Dylan is an incredible kid!! We love you all. xx
Shannon
- Tuesday, September 7, 2010 6:09 AM CDT
Happy 5th transplant anniversary Jessie!!! We are coming u on Aiden's 1st year and he like Jessie has had to go through alot so I understand your feelings. Glad you guys are having a great summer so far. Take care!!
http://thelopezkids.blogspot.com
Penny <journalist2005@yahoo.com>
- Sunday, July 4, 2010 12:33 AM CDT
Hi Cari, Don't apolagize for seeming glum cause with all that we face with our children everyday while doing just that, striving for a normal whatever that may be ... we can admit what our true feelings are now and again. Sending you big hugs...sorry we have been out of touch for a while. Just wanted to let you know that we are still here. I am home most of every day call me if you feel you have a moment to spare, would love to hear from you.
Hugs again Mommy Koren to Bryce
Koren
webster, ma - Friday, April 30, 2010 9:10 PM CDT
What a wonderful journal today. Inspiring to be more normal everyday while fighting the odds...Love you all!
DK and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Friday, April 30, 2010 5:36 PM CDT
Hey Guys! I am so glad to have gotten a message from you! I was thinking abou Jessie just the other day and wondering if you guys got home okay.
Shelly Maddox <maddox83@yahoo.com>
Amarillo, Tx US - Saturday, January 2, 2010 5:58 PM CST
Have a beautiful Christmas and a great time in Fl. Jesse and Dylan are awesome! We love you guys and think about you often.
Dee Abraham <cabraham@rochester.rr.com>
Naples, NY US - Sunday, December 13, 2009 7:53 PM CST
All i can say is that we love you and we feel your pain... in every aspect you wrote about today, and in others you don't write about... but we know.
hugs and much much love!
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Monday, November 9, 2009 8:43 PM CST
Just sending thoughts and prayers to you via the "official" jessie website! ;) We think of you often... and swear we will get together soon!!!
Hugs & smooches to you and the kids!
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Tuesday, October 6, 2009 9:18 PM CDT
Hi Cari and Matt~
I just wanted to thank you for sharing this journey you have had. I went to the beginning and laughed and cried (more times than I thought I would) and was amazed at how far you have come. You are an amazing family full of hope and determination. I am looking forward to continuing this journey with you and hopefully help you and learn from you and to help better Jessie's life and make her happy.
Julie
Julie Cote <jmkjcote@comcast.net>
Marlborough, MA USA - Monday, September 28, 2009 2:24 PM CDT
HAPPY BIRTHDAY JESSIE....just checking in....sounds like the Docs at Duke had some good news, no changes can sometimes be good....we know this! Hope all is well, write, email whichever is easier.....
Best to All!!
Carrie and Family
Carrie Goldman <nestaone@comcast.net>
- Friday, September 4, 2009 4:13 PM CDT
Happy Birthday, Jessie!
Brent and Christine Midwood
Stow, MA USA - Thursday, September 3, 2009 8:24 PM CDT
Hi Cari, Just wanted to let you know I am always thinking of you guys and am happy to hear things are going well. I can't belive Jessica is 7, Wow!
Tanya <tanyac22@lycos.com>
- Friday, August 28, 2009 7:41 PM CDT
Happy Birthday sweet princess :)
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Friday, August 28, 2009 3:55 PM CDT
Good Morning, My name is Linda and I am the grandma to Waverly and Oliver. I am thrilled that you all got to spend time together as you support each other through this very difficult journey. Jessica has found a warm place in my heart because she and Waverly look so much alike. I love the pictures of the two of them together. I will uphold your family in my prayers.
Linda Lee Iezzi <iezzilin@ptd.net>
Macungie, PA USA - Thursday, August 20, 2009 9:59 AM CDT
Hi, I have just become aware of Jessie. My name is Misty and my son, Will has MPS111A also. I read about you all going to the BBQ and meetiung Waverly and Oliver. I see some other people I know that have signed the guestbook too. I am so happyto know of your story and will check back often, Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Sunday, August 16, 2009 2:00 PM CDT
Checking in - glad to see the updates and good news for next year. Have a wonderful time away, and happy Anniversary! Best, Brent and Christy
Christine Midwood
Stow, MA USA - Sunday, June 21, 2009 6:13 PM CDT
Hi Cari! I am so happy to hear that Jessica is doing so well and that you are finally getting some warmer weather! Take care!
Penny <journalist2005@yahoo.com>
- Saturday, April 18, 2009 8:10 PM CDT
Just stopping by to say hello.
Sending hugs and kisses for a beautiful Easter weekend.
Love,
Donna Kay and Tyler
www.caringbrige.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, pa us - Thursday, April 9, 2009 4:08 PM CDT
Hi my name is Penny and my 5 year old daughter Hannah and 10 month old son Aiden were recently dx with MPS IIIA. I am glad to hear your daughter is doing well.
http://thelopezkids.blogspot.com/
Penny <journalist2005@yahoo.com>
Lakewood, WA 98499 - Thursday, March 5, 2009 11:15 PM CST
It has been too long since I have signed your questbook. Glad things are going well. Many hugs and prayers.
">
Paulina and Andrew
Paulina Jump <pjump@zoomtown.com>
Sparta, Ky USA - Wednesday, March 4, 2009 8:26 AM CST
Pure joy is the picture of Cari and Jessie sledding -- thank you so much for sharing it. Still cold here, too, but a lot flatter! Our first attempt taking Annie sledding was likely mine (Nora's) first time ever, too. We're so glad to hear your news, and so grateful that things are going well. Much much love to you from Chicago.
Nora, Matthew, and Anne <nkflynn@yahoo.com>
Chicago, IL - Monday, March 2, 2009 1:59 PM CST
Hello all!! This is Reia JAred Connors Mom I was just thiking about you guys. How is Jesse? I love the Family Picture on hte home page. Hope to hear from you soon.:)Love-The Connor Family
Reia Connor <LilPhunk2@aol.com>
Saugus, MA USA - Monday, March 2, 2009 8:10 AM CST
Love the new family picture on the home page - glad to hear that you guys have been enjoying our snow (someone should - Brent and I have had enough of it!). Maybe we should stop shovelling and start sledding instead! :)
Christine Midwood
Stow, MA USA - Monday, February 23, 2009 10:56 AM CST
Cari,
Once again you were my life raft in the ocean of MPS Blue! Just knowing you are there for me, is such a comfort! I enjoyed catching up, although it has been too long.
Sending you love, hugs and kisses from Hershey,
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, pa us - Thursday, January 29, 2009 11:57 AM CST
Well guys, I am shamefully behind in my visits! Merry Christmas! The kids look wonderful. Dylan is SUCH a perfect mix of mommy and daddy. And I LOVE the pic of Jessie and the doggie :)
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY - Monday, January 5, 2009 0:17 AM CST
Oh HAPPY, the kids look fantastic....Jessie no teeth, I love it. Kaija has no teeth right now either, so they can sing the song! So glad to hear everything is quiet on the medical front, we like quiet! Hope your holiday season is wonderful and fun!
Hugs
Carrie and Josh
Carrie Goldman <nestaone@comcast.net>
Marlboro, MA - Saturday, December 13, 2008 9:31 AM CST
Hi guys! Glad to see the kids are up to the usual sibling antics! I LOVE Jessie with the missing teeth. ABSOLUTELY adorable smile:)
Dawn Wladyka <dmo41374@aol.com>
Malverne , NY USA - Saturday, November 29, 2008 10:38 PM CST
I just shared your latest update with Dominick. He still remembers the special relationship he had will Jessie.
Take good care.
Kari and Dominick
Wheat Ridge, CO USA - Monday, November 24, 2008 10:04 PM CST
Great news - glad to hear that you've had some more time for yourself with the kids in school. The kids sound happy - bet they had fun at Halloween and are starting to get excited about Christmas!
Christine Midwood
Stow, MA - Wednesday, November 12, 2008 10:04 PM CST
Hi!
just thinking about you guys today. It's been awhile since I checked in. Dylan's bday looked like such and awesom celebration! so happy you are all doing so well.
Dawn Wladyka <cmo41374@aol.com>
- Thursday, October 9, 2008 3:11 PM CDT
Glad to hear that things are going well with you! And that they both are loving school. We'll have to get together soon.
Tara, Pat, and Bridget <tklupa@comcast.net>
Milford, MA - Tuesday, October 7, 2008 7:04 PM CDT
Thanks for the update Cari. I am glad that Jessie and Dylan are doing well.
Evan Freiberg
Baldwin, NY USA - Monday, October 6, 2008 8:07 PM CDT
I wasn't crazy! I just got in front of my computer, so I'm sorry it's a day late!!
HAPPY BIRTHDAY, JESSIE!!!
It was great to see you, Dylan, Mommy and Daddy last week. I hope you're doing well. I hope you enjoyed your birthday yesterday. You're an incredible little girl!
Hugs to you and your family!
Cynthia, Frank & Frankie
DeMatteis Family <cynthia@frankiepants.com>
Hamden, ct - Friday, August 29, 2008 9:25 AM CDT
Happy Birthday, Jessie!
We hope you have a wonderful day! Miss you tons and tons!
Love,
Auntie Sara, Uncle Dan, Maggie and Ben (your furry friend)
Sara Daley <npsara@comcast.net>
Thorndale, PA - Thursday, August 28, 2008 7:52 AM CDT
Checking in - hope you have (had?) a great vacation and trip down to Duke. Pretty soon it will be back to school! So glad to hear things are going well.
Christine Midwood
- Monday, August 25, 2008 9:01 AM CDT
Cari, Hi there, I finally have a minute to leave a message. I have been following your update though. Sounds like year three has gone well overall. It is so good to see Jessie enjoys her school and friends. We can't wait til Bryce can have some friends and a routine that he likes too. THinking of you... Hope your enjoying the Red Sox! and the rest of your summer goes smooth.
Hugs
Mommy Koren to Bryce
k adams
webster, ma usa - Tuesday, August 19, 2008 9:16 PM CDT
Happy Summer! Happy baseball! We love the pictures of beautiful Jessie and Dylan, and are so grateful for the updates. We're thinking of you always.
Nora, Matthew, and Anne <nkflynn@aya.yale.edu>
Chicago, IL USA - Monday, July 7, 2008 12:45 AM CDT
I know it's WAY belated!! Jessie, Happy 3rd Anniversary!
I'm so glad to see how far you've come since we met you on the 5th floor at Duke!
Sending you love and hugs!! And, we hope to see you, Dylan and mommy and daddy soon!
Love,
Cynthia, Frank & Frankie
The DeMatteis Family <cynthia@frankiepants.com>
Hamden, ct - Saturday, July 5, 2008 8:22 AM CDT
The kids are beautiful. Your story about the girl at preschool that was worried about Jessie reminded me of her relationship with Dominick. I'm glad you have some normalcy in your life. I wish we could get more Red Rox games here but the Rockies will just have to do. Take care.
Kari
Wheat Ridge, CO - Friday, July 4, 2008 8:14 AM CDT
THREE YEARS! My, how quickly time flies. Have a great time at the wedding!
Brent and Christine Midwood
Stow, MA USA - Wednesday, June 25, 2008 1:38 PM CDT
what a beautiful progress report! you must be so proud of your girl!
Love, Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne , NY 11565 - Friday, May 23, 2008 11:51 PM CDT
What an awesome update!! Frankie gets another year at his preschool, for which I am VERY thankful.
I'm so happy to hear that Jessie is doing well there and that there are little children looking out for her. That's just amazing!!!
Hugs & love,
Cynthia
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Thursday, May 15, 2008 9:48 AM CDT
Hi Cari, Hope your Mother's Day was Great! THinking of you...
Mommy Koren to Bryce
mommy koren
- Tuesday, May 13, 2008 7:06 AM CDT
Cari,
HAPPY MOTHER'S DAY!! :)
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Sunday, May 11, 2008 8:31 PM CDT
Hi Cari and Matt
Just wanted you to know that you are always in our thoughts and prayers. May God continue to bless you.
Love Mary <mkschneski@yahoo.com>
Bennington, VT - Sunday, May 4, 2008 7:54 PM CDT
Hi Matt, Cari, Jessie, & Dylan,
It's been a while since I have checked into Jessie's page. It is great to see the pictures of Jessie & you all having so much fun at Disney. Also glad that you have your computer back from the shop - feel free to let me know if you have any more trouble with it. (As you know, I enjoy tinkering with them!) See you soon!
Patrick Klupa <pklupa@wi.mit.edu>
Milford, MA USA - Wednesday, March 26, 2008 3:23 PM CDT
Matt, Thinking positive thoughts for you and your family. It looks like you guys had a great trip to Disney.
ECHS Eagle
Manchester, CT - Wednesday, March 26, 2008 11:27 AM CDT
Hey guys...think of you often as I drive by on my sales trips. Pictures from Disney are great. Will keep you in my thoughts & prayers. Have a great spring...take the Time to Smell the Flowers! God Bless.
Ed Trainer <edtrainer@coldwellbanker.com>
Wellesley , MA USA - Tuesday, March 25, 2008 4:30 PM CDT
Great to see another post...I missed seeing the updates! Keeping you in our thoughts...Happy Easter!
Brent and Christine Midwood
Stow, MA USA - Monday, March 24, 2008 11:54 AM CDT
Dear Cari, Matt, Dylan and JESSIE!!
I am not sure if you will remember me, but I was Jessie's teacher at Longfellow Childrens Ctr...years ago. I was searching for another friends child's website and somehow ended up on your site! Goosebumps is all I can say. and even stranger we were in Disney at the same time.....we also had the "cut lines pass".....I know what you mean by how wonderful the staff there can be!
I am touched by your entries....your faith and Jessie's strength! KEEP GOING GIRL!!
Take care of yourselves.....
Carrie
Carrie Goldman <nestaone@comcast.net>
Marlborough, MA - Saturday, March 15, 2008 2:38 PM CDT
Hi Cari, Glad to see there is much fun to speak of. We think of you often, sorry we don't keep in touch as much as we want to. It's a crazy world to get used to again. We too are planning our MAW trip to Disney. We hope Bryce is not to scared of the characters, but we know he will love to see his sisters laughing and enjoying themselves again.
Hope all is well, take care
hugs-
Koren
kadams
webster, ma usa - Tuesday, February 26, 2008 11:58 AM CST
Hey there!! I'm so happy to read your update! I'm jealous of your trip, but rest assured, we'll make it there soon. I'm not so sure Frankie will take to the characters as great as Jessie did, but the Barney option may actually win him over.
Just popping in to check out the pictures, too!
Take care, and we'll see you soon!!!
Cynthia, Frank & Frankie
cynthia <cynthia@frankiepants.com>
hamden, ct - Monday, February 25, 2008 8:30 PM CST
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)
BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Thursday, February 14, 2008 3:28 PM CST
Seeing the pictures of your family in Orlando made my week. Jessie looks so excited, and I've never seen such big smiles on you two, Cari and Matt. What a perfectly wonderful family vacation. We are so happy you were able to take it.
Love,
Alison and Kate (who is going to flip over that Barney picture)
Alison Kirk <kirkplace@comcast.net>
Nashville, TN - Thursday, January 31, 2008 3:14 PM CST
Hey guys,
I know it has been more than a million years since we have seen you, but we think of you all the time and keep up on your happenings here on your website. We'd love to see you if you ever have a free moment on a visit here to CT. The kids are beautiful and you can just see the joy in your faces in those Disney pictures.
Sara and Jamie Scotto (scottofamily@cox.net)
Sara Scotto <scottofamily@cox.net>
- Monday, January 28, 2008 10:45 AM CST
Those of you that know me, know what a Disney FREAK I am. I mean, I love love love it there. But I had never really seen magic until I went to Disney with Jessie! Jessie found magic in people watching, she found magic in french fries and grapes for lunch, she found magic with Mickey (who is THE MAN, incidentally, in Jessie's eyes), she found magic enough to say "dogdogdog" for the first time in YEARS! I don't think I will EVER have a trip to Disney that will come close to this one. Thank you, Jessie, for letting me and Uncle Dan be a part of it. We love you more than anything in the world.
Auntie Sara <npsara@comcast.net>
Thorndale, PA - Saturday, January 26, 2008 10:52 AM CST
what a great picture! jessie looks WONDERFUL (as do you all!)...hope you're having a blast!
tori
durham, nc - Tuesday, January 22, 2008 8:25 PM CST
I just realized that you guys are off to DisneyWorld this week. Have a WONDERFUL time and take lots of pictures!
Brent and Christine Midwood
Stow, MA USA - Tuesday, January 8, 2008 8:42 AM CST
"Holy Cow!" was Jessie cute or what??? (pun completely intended)
Loved seeing those pictures. Can't wait to see you next week. What a great time we'll have!
Love,
Sara
Sara Daley <npsara@comcast.net>
Thorndale, PA - Monday, January 7, 2008 11:40 PM CST
They are the cutest little cows! Looks like the pageant was even better than last years.
Love, Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Monday, January 7, 2008 9:25 AM CST
Wow! Jesse is getting so big! She is beautiful! Hope all is going well & y'all have a wonderful holiday!
Lisa C <lisaandshawn@bellsouth.net>
Charleston, SC - Wednesday, December 19, 2007 6:14 AM CST
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)
BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Thursday, November 22, 2007 9:22 AM CST
Happy Thanksgiving!
Hope your day is peaceful and surrounded by family.
Hugs-
Mommy Koren, Bryce and his family
kadams
webster, ma usa - Wednesday, November 21, 2007 8:53 PM CST
What, no update on the Sox win???
Hugs,
Cynthia
Cynthia DeMatteis <cynthia@frankiepants.com>
hamden, ct - Monday, October 29, 2007 3:06 PM CDT
Joining in on the Victory Celebration for The Red Sox!!!
We watched every game, even the one that was on while we were visiting the ER on Wed... Things are good now. Hope Jesse is hapily cast free... and celebrating too.
Thinking of our fellow fans...
Mommy Koren, Daddy chris, Bryce and the girls
k adams
webster, ma usa - Monday, October 29, 2007 2:57 PM CDT
Dear Jessie,
Congrats on your team's big victory:) Hope you were recovered enough from the cast removal to enjoy it. Tell mommy and daddy congratulations.
love, dawn, tony, faith, aj and virgil
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, October 28, 2007 11:28 PM CDT
Tomorrow's the big day for the casts off...Horay! Hope your day goes smoothly. Carrie, you may want to bring some of jessie's bath soap with you to wash and soothe her skin once the casts are removed, otherwise you'll have to use that hospital soap...lotion too, those casts really are drying. I wish I had thought of that when Bryce had his first taken off when he was born he had thigh high ones for his curve in his feet and legs. He had them til he was three months old. Happy Cast off day tomorrow!
Thinking of you ....
Mommy koren Bryce his daddy and the girls
k adams <kaadams@charter.net>
webster, ma usa - Tuesday, October 16, 2007 10:29 PM CDT
Just a few more days to go with the casts!!! I love the photo of Jessie on the horse, that's awesome! We're still looking into something like that for Frankie.
What a gorgeous (but cold) fall day today!
Glad to see the Red Sox are faring better than the Yanks... for you guys at least! Down here, it's a completely different story! ;)
Hugs, love & Prayers,
Cynthia, Frank & Frankie
The DeMatteis Family <cynthia@frankiepants.com>
Hamden, CT - Saturday, October 13, 2007 10:50 AM CDT
Hiya Jessie,
Looks like you had a great time apple picking and at little D's birthday! I can't wait to see you for Thanksgiving!
Love,
Auntie Sara
Sara Daley <npsara@comcast.net>
Thorndale, PA 19372 - Monday, October 8, 2007 3:01 PM CDT
Jessie, I love the picture of you on that horse! You look so great.
We love you,
Alison and Kate
Alison Kirk
Nashville, TN United States - Friday, October 5, 2007 10:42 AM CDT
I am so sorry to hear about the loss of your friend Noelle. I can't imagine what agony her parents and sister must be in right now. I will definitely be praying for them today.
Dawn <dmo41374@aol.com>
- Friday, September 28, 2007 12:14 AM CDT
Hi Carri, Glad Jessie is doing well and it's great to see her smile while horseback riding. I have a few horse lovers in the house too....Thinking of you
Mommy Koren, BRyce, Chris and the Girls
k adams
webster, MA usa - Monday, September 17, 2007 3:51 PM CDT
Hey guys-
just finished watching the game and thought of you.I was so happy to see the pics. I'm a firm believer in any animal assisted therapy and thought they were really beautiful. Hope she continues to enjoy the experience.
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Friday, September 14, 2007 11:27 PM CDT
Glad to see that Jesse is enjoying her horseback riding. Thanks for posting the pictures.
Leslie Jurado <ijf@comporium.net>
Rock Hill, SC - Friday, September 14, 2007 9:18 PM CDT
Hello--
I love the pictures of Jessie's horseback riding lessons. What a pro! I'm glad to hear good things about the surgery, and look forward to seeing you all soon.
Anna & Keirsten
San Mateo, CA - Thursday, September 13, 2007 1:37 PM CDT
Hello princess,
Hope the surgery was successful and you are soon giving mom and dad a run for their money.
Love,
Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Thursday, September 6, 2007 10:09 PM CDT
We pray jessie's surgery went well... and you all have a restful night. Thinking of you.
hugs-
Mommy Koren, Bryce, Daddy Chris and the girls
k adams
webster, ma usa - Thursday, September 6, 2007 8:02 PM CDT
Happy Belated Birthday Jessie! Tyler's is coming up soon also. Time goes too fast.
We hope and pray your surgery is successful. We think about you everyday.
I LOVED the updates and photos. I love seeing that gorgeous smile on Jessie's face when I open your website.
Love,
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Thursday, September 6, 2007 12:39 AM CDT
Good luck with your surgery, Jessie!
Love,
Alison and Kate
Alison Kirk
Nashville, TN United States - Thursday, September 6, 2007 6:56 AM CDT
Hey there! Just wanted to pop in and see how things were going. I love the update, especially the not taking any day or moment for granted.
It's amazing how our children have taught us such a valuable lesson and given us an incredible gift at such a young age, despite everything we have put them through!
Love & hugs,
Cynthia, Frank & Frankie
The DeMatteis Family <cynthia@frankiepants.com>
hamden, ct - Monday, September 3, 2007 6:26 AM CDT
Greetings all and Happy Birthday to Jessie! I am very glad to hear that Jessie's test results were so good. Best regards, Nicola
Nicola Lemay <nlemay@foleyhoag.com>
- Friday, August 31, 2007 9:38 AM CDT
We missed your birthday, Jessie, but we hope it was wonderful! Five years old is a very big girl. We are happy, happy that you are doing so well and we hope your parents stretch the birthday celebration out for a while.
Love to you and your family,
Alison and Kate
Alison Kirk
Nashville, TN United States - Wednesday, August 29, 2007 4:41 PM CDT
Happy Birthday Jessie.
Evan
- Tuesday, August 28, 2007 9:26 PM CDT
HAPPY BIRTHDAY JESSIE!!!
We're sending you great big birthday hugs from CT! And, we hope to get together with you, your little bro, mommy and daddy soon!
I hope you have lots and lots of yummie cake, goodies and of course, fabulous presents! If you're anything like Frankie, you get spoiled a lot! But, that's okay!! ENJOY IT!
Hugs and smoochies to you,
Cynthia, Frank & Frankie
dematteis family <cynthia@frankiepants.com>
hamden, ct - Tuesday, August 28, 2007 2:38 PM CDT
Happy Birthday Jessie! Hope you have a great day with lots of fun and yummy cake! Congrats on the great report from Duke. I bet you blew them away!
Love, Dawn, Tony, Faith, AJ and "virgil" Wladyka
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Tuesday, August 28, 2007 9:22 AM CDT
WOW, HAPPY 5th Birthday !!!! Best wishes t oa special little girl and her family on this extra special day!!!
Big HUggies and Kisses....
Bryce,His Mommy Koren, His Daddy Chris and the Girls
k adams
webster, ma usa - Tuesday, August 28, 2007 7:35 AM CDT
Happy Birthday to my sweet Jessie! Uncle Dan and I hope you have a happy day filled with lots of fun! We miss you and can't wait to see you soon.
Love,
Auntie Sara & Uncle Dan
Sara Daley <npsara@comcast.net>
Thorndale, PA - Tuesday, August 28, 2007 7:17 AM CDT
Jesse,
Happy Birthday! Can't wait to hear the results of your Duke visit! Keep on showing us the way!
Cooper Rieg <prieg@msn.com>
Kansas City, KS USA - Tuesday, August 28, 2007 6:48 AM CDT
Hello!
Loved the pictures! Things didn't go as planned this week, getting home from Duke and all, but I will get around to calling...I gain so much strength from you and your family. Thank you again for sharing your story.
Hugs and Kisses from Hershey!
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Saturday, July 21, 2007 1:48 PM CDT
Two years - wow. What a milestone! Just letting you know that we're still checking in on Jessie's progress and getting the updates from Sara and Dan. Glad you're all having a great summer - you deserve it!
Brent and Christine Midwood
Stow, MA USA - Tuesday, July 17, 2007 12:36 AM CDT
HORAY!!! Immunizations! What an uplift. Sounds as if Jessie really enjoys being around other kids and going to pegasus... It is so good to see that she is doing so well. Hopeing for a wonderful summer to all!
thinking of you... Mommy Koren,Daddy chris, BRYCE and the girls.
k adams
webster, ma usa - Saturday, July 14, 2007 8:41 PM CDT
Hi Cari, thinking of you... hope your fourth celebrations were wonderful. wishing your whole family a great summer...
Mommy Koren and Bryce (Daddy Chris and the Girls too!)
k adams
webster, ma usa - Sunday, July 8, 2007 10:37 AM CDT
Happy Anniversary!!! I remember seeing you guys at your post visits, and now it's been 2 whole years!!! Thanks for continuing to be our great inspiration. We love to hear the stories of normalcy. School must be soooo exciting! Have a great 4th.
HOpe & Prayers-
Shannon Rieg...Cooper's MOM
shannon rieg <shannon.rieg@hotmail.com>
- Sunday, July 1, 2007 9:44 PM CDT
My mom always overpacked my lunches and I was the most popular kid in school in the cafeteria. Outside of the cafeteria, not so good, but that's another story. Sounds like summer is going well. Can't believe it was two years ago we were hanging out at you-know-where. Maybe someday we'll get to hang out someplace fun together.
Love to all the family,
Alison and Kate
Alison Kirk <kirkplace@comcast.net>
Nashville, TN United States - Thursday, June 28, 2007 10:31 AM CDT
Thinking about you and just checking in. Just seeing Jessie's pictures puts a smile on my face!
Cari, thanks for being such a great support!
Hugs and Prayers
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Wednesday, June 27, 2007 10:58 PM CDT
WOW! A big girl lunch! Now Daddy can teach you all about "trading" and how to get the good stuff from the other kids...
Love you! I kept the renegade binky for a couple of days because it made me think of you. Miss you, little girl!
xoxo
Auntie Sara
Sara Daley <npsara@comcast.net>
Thorndale, PA 19372 - Tuesday, June 26, 2007 3:40 PM CDT
Hi guys-
wow, I can't believe Jessie is old enough to bring her own lunch. What a big girl! I think i need to see a pic of this lunch box. SOunds very cool.
Summer program for Faith doesn't start until 7/2. She's counting the days.
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Tuesday, June 26, 2007 12:52 AM CDT
Hey all!
Have a WONDERFUL non-Duke week off and away from home! You all deserve a little "normalcy"!
I heard something about the Sox game last night???? :) Just kidding! ha ha ha
Cynthia <cynthia@frankiepants.com>
Hamden, CT - Thursday, June 14, 2007 1:10 PM CDT
Matt and Cari - It's been a while since I checked in to see how Jessica is doing. I started at a new firm in March and finally got Jessie's website onto my favorites this morning. I am very happy to learn that she (and all of you) are doing so well! All the best, Nicola
Nicola Lemay <nlemay@foleyhoag.com>
- Monday, June 11, 2007 8:43 AM CDT
that is a beautiful smile on jessie's face and dylan is getting so big! i'm looking forward to seeing you guys on your next trip down...let me know when you have dates!
tori <toriwillard@mac.com>
durham, nc - Tuesday, May 29, 2007 6:23 PM CDT
Happy Annivesary!! All you can eat sushi???? I am so jealous! I could definitely get my money's worth too!
It's great to hear how wonderful Jessie is doing. I love to read about her progress. It helps us so much to see that.
Hope all is well!
Hugs,
Cynthia, Frank & Frankie
cdematteis <cynthia@frankiepants.com>
hamden, ct - Monday, May 21, 2007 1:03 PM CDT
Happy anniversary! thinking of you....
Mommy Koren to Bryce
k adams
webster, ma usa - Monday, May 21, 2007 12:48 AM CDT
I know your problems must seem insurmountable. I'll pray for you all.
Mary A. Workman <marwrkmn@yahoo.com>
Mountain Home, ID U.S. - Thursday, May 17, 2007 5:14 PM CDT
Early wishes... I just couldn't wait til tomorrow to wish you a VERY HAPPY MOTHERS DAY, Carrie!!! thinking of you.
Mommy Koren,Bryce, daddy chris and the girls
k
webster, ma usa - Saturday, May 12, 2007 9:21 PM CDT
Hi Jessie, I was so happy to read that you are doing so well. I keep you and your family in my thoughts and prayers.
cabernat@chestertel.com <cabernat@chestertel.com>
Chester, SC - Tuesday, May 8, 2007 9:56 PM CDT
Batter up! Hope you had a great time at the game! Here we've added healthy skepticism when watching the Cubs; it feels better that way when under .500. Annie is salivating for Dylan's chocolate, so should probably have a snack. So wonderful to see such joyful kids. Love to you all. --Nora, Matthew, and Anne
The Flynnches <nkflynn@yahoo.com>
Chicago, IL USA - Thursday, May 3, 2007 8:44 AM CDT
Hi all,
Well, I hope your Sox game was a fun day/night out for you both! It's funny, down here in CT, there's a mix of Sox and Yankees fans. I'm not much of a baseball fan, so I'll just stay out of that one! ha ha ha
I just wanted to pop in on your site to say an official "hello" to all of you. I'm so glad to hear that Jessie is doing well!
Hugs,
Cynthia
AaZQaQ--frankie just attacked keyboard <cynthia@frankiepants.com>
hamden, ct - Wednesday, May 2, 2007 7:03 AM CDT
Jessie, Dylan, Cari & Matt,
Just checking in. We miss you all. Any chance a vacation weekend in PA this spring will work? Pablo wants to give Jessie a big kiss.
Barry and Karen <mbarry516@msn.com>
Downingtown, PA - Friday, April 27, 2007 12:20 AM CDT
It's been a while since my last post...but that doesn't mean you're far from our thoughts. I keep watching your blog and am always so glad to hear that things continue to go well. And, the Sox won on Saturday so it was a great day for an outing! All the best, Brent and Christy
Christine Midwood
Stow, MA - Wednesday, April 25, 2007 3:11 PM CDT
Yeah to normalcy. You guys deserve it. We will be there with you soon.
Tonya
Tonya Naylor <tpawlow@yahoo.com>
- Tuesday, April 24, 2007 8:20 PM CDT
What a beautiful little girl- am so glad to hear that she is on the upswing of feeling better. You will always be in my thoughts and prayers.
Anonymous
NC - Thursday, April 19, 2007 1:17 PM CDT
The pictures are great!!! Jess's smile is the best!!! Thinking of you all! Love,
Cheryl <czrn@msn.com>
Raleigh, NC - Sunday, April 15, 2007 2:00 PM CDT
GREAT PHOTOS! I love Jessie's curly hair! She's beautiful and Dylan is loving those fries!! :)
Thanks so much for your continued support. Your emails help so much to keep me sane! I'm so happy that things are getting back to normal for all of you. We hope we're shortly behind you!
Take care and big hugs to the little ones! Frankie sends them too!
Cynthia
Frankie's mommy <cynthia@frankiepants.com>
Hamden, CT - Thursday, April 12, 2007 10:22 PM CDT
We love the new pictures! Annie reaches out to touch Jessie and protests when I change the page. We'll keep them up for the cousins to "connect". We're thinking of you always. Happy Easter and bring on Spring!
Love,
Annie and her parents
Nora, Matthew, and Anne <nkflynn@yahoo.com>
Chicago, IL - Monday, April 9, 2007 9:10 AM CDT
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)
BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Sunday, April 8, 2007 8:28 AM CDT
Happy Easter to my little bunnies, Jessie and Little D!
Uncle Dan and I miss seeing you so much. Hope it's not too cold for your egg hunt! Love love love always,
Auntie Sara
Sara Daley
Thorndale, PA 19372 - Friday, April 6, 2007 7:57 AM CDT
Have a blessed Easter and enjoy your vacation time with friends. How wonderful that Jessie has made so much progress since transplant.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Thursday, April 5, 2007 8:19 PM CDT
We wish Jesse all the best. We will keep her in her thoughts & prayers. Our daughter Kasandra was diagnosed w/ MPSIIIA on July 28th of 2005. We are just trying to learn has much as we can by reading other families journeys. Thanks for that opportunity.
www.caringbridge.com/visit/Kasandra
Trisha Offenbacker <trishaoffenbacker@yahoo.com>
Mountain Home AFB, ID USA - Thursday, March 29, 2007 10:55 AM CDT
Your journal entry fills me with hope. It's wonderful to hear how fulfilled Jesse's days have become. I'm praying that Cooper's immune system comes back enough so he is able to attend school in the fall. I think the stimulation they receive from a school setting is pivotal in their recovery. They too long for a sense of NORMALCY!! Bravo to both of you for hanging in there during the tough times because it has brought you to where Jesse is today.
Hope & Prayers0
Shannon Rieg...Cooper's MOM
shannon rieg <shannon.rieg@hotmail.com>
- Tuesday, March 20, 2007 10:42 AM CDT
PRAYER BEARS WEBSITE
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)
BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Saturday, March 17, 2007 9:40 AM CDT
Wow! What a beatiful note from Jessie's therapist. It must be so nice to know that school brings her so much joy!
Love, DAWN
PS don't feel guilty about Dylan and the tv. Faith now recognizes more commercials than I do. I'm not sure whether it's funny or pathetic!
Dawn <dmo41374@aol.com>
Malverne, NY - Tuesday, March 13, 2007 7:22 PM CDT
I haven't logged on in a while but I think of you guys often. I'm happy to hear things seem to be going well. Take care and know that you are in my thoughts.
Nikki Udovich <nudovich@pprsr.org>
Naples, NY USA - Tuesday, March 13, 2007 8:41 AM CDT
Hi Cari
The new pictures are very cute. Jessie is such a bay doll and Dylan is very cute hiking at the farm. I guess Dylan will become the "big, little brother" to Jessie like Jay Jay is to Izzy. I am happy to hear that Jessie's teachers are so devoted and realize what a gift she is to their school. I hope you start getting some spring-like weather soon.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Sunday, March 11, 2007 11:40 PM CDT
Hi Jessica and Family
My name is Jenna and I came across Jessica's site. She is a fighter, and a trooper. Her smile just shines. She is an inspiration to all. Jessica and your family are in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Thursday, March 8, 2007 5:39 PM CST
Hi Jessie and family. Hope you are all doing well and looking forward to spring. We have actually had a sunny, blue sky day here in SC today. I thought of you and all of the MPS sweeties on Friday as we released lots of purple(and one white) balloons at Izzy's school. I said a prayer for all MPS families as the balloons lifted up. Izzy's mom got a phone call yesterday from a lady who had found one on the beach a few hundred miles from us. The wind was blowing to the east that day, so maybe just one made a transatlantic journey. You are a beautiful little girl, Jessie. Stay healthy.
Izzy's Gandy
Catherine Abernathy <cabernat@chestertel.com>
chester, sc - Tuesday, February 27, 2007 3:23 PM CST
Happy Belated Birthday Matt. I hope the weather is getting better and the ice is melting. We're a little stir crazy here too, but thankfully, school was not cancelled! Sure wish we'd have a REAL snowstorm instead of this yucky ice!
Love, Dawn
Dawn Wladyka <dmo41374@aol.com>
Malvern, NY 11565 - Monday, February 19, 2007 6:29 PM CST
Just checking on sweet Jessica! We will defintiely be including your friends in prayer!
Love and hugs,
Patty and Jesse MPS III
PattyT <wordinedge@aol.com>
Balto, MD USA - Friday, February 16, 2007 7:00 AM CST
Okay, I don't check my websites for a few days and you go and sneak in a birthday. HAPPY BIRTHDAY, CARI! And you know you won't get any sympathy from me about your age, you are a youngster. I've got more than a decade and about a hundred wrinkles on you. I'm glad you and Matt had a fun night out, and I'm always so happy to hear about how well Jessie is doing. We all need her successes.
Love,
Alison
Alison Kirk <kirkplace@comcast.net>
Nashville, TN United States - Thursday, February 8, 2007 6:40 AM CST
Happy Birthday! I love the pic of Dylan on skis! You're not crazy.I'm a firm believer that exposing kids to stuff early and often is the best way to make sure they're not afraid. (I guess that why you and I are blessed with kids who love dogs!)Anyway, I've been following your lead and checking in on Bryce. Fingers are crossed and prayers are lifted that he will be back at the apartment soon.
Love, Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Wednesday, February 7, 2007 12:59 AM CST
Hi, Carri
Happy Belated Birthday, I finally am able to get to the sites I check up on...I don't know about you but once I turned 30 I stopped counting....I keep forgetting that that was almost 6 years ago for me. Hope you had a wonderful day!
THank you for mentioning Bryce on your site,prayers are working,I just know it.
hugs-
Mommy Koren to Bryce
www.caringbridge.org/visit/fightforbryce
koren adams <kaadams@charter.net>
durham, nc usa - Monday, February 5, 2007 9:17 PM CST
happy (belated!) birthday cari! i'm glad you guys were able to get out and have some fun! dylan on skiis? i want pictures! enjoy the snow :) we've had it twice in the past two weeks - as in it actually stuck around for a few hours before melting! big excitement around here :)
tori <toriwillard@mac.com>
durham, nc - Monday, February 5, 2007 6:34 PM CST
Hey Cari,
It's Jamie Armstrong. I'm thinking of you and your family. You are all in my prayers. Drop me a line sometime.
JA
Jamie Armstrong <armtwist@gmail.com>
Reading, MA US eh - Saturday, January 27, 2007 7:14 PM CST
Cari-
Thanks for your sweet email. (Since it went to Pete...I'm just now hearing it!!)
Thank YOU for that sweet entry. It gives me HOPE. Lately, I have been feeling as if we will never survive transplant, and knowing Jessi is thriving gives me so much satisfaction. I often find myself wondering if Cooper will ever be able to be in normal kid-like settings, and to hear about Jessi's days at school are so rewarding. (You mean you really CAN make plans and not check your phone every time it rings?!?!?)
Thank you, thank you for your words of encouragement!
Hope & Prayers-
Shannon Rieg...Cooper's MOM
PS-how do you leave messages for Frankie? I always get kicked out!?! C-we are praying for Frankie to also make his spectacular recovery!
Shannon Rieg <shannon.rieg@hotmail.com>
Durham, NC - Monday, January 22, 2007 8:09 PM CST
Cari,
What you wrote was absolutely beautiful and so perfect. I'm so glad you're at a point with Jessie that you are able to relax... exhale. We'll be there soon, I can feel it.
Thank you for your entry, your continued supportive emails and phone calls. Thank you for being there because you're right, you can only understand if you've gone through what our families have gone through.
Please know that our prayers for Jessie, Dylan and your family will still go on, despite how relaxed you get! :)
Take care,
Hugs,
Cynthia
DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Sunday, January 21, 2007 8:25 PM CST
What a beautiful and moving journal entry. How wonderful that Jessica has met this remarkable milestone in the transplant journey! May God bless her with continued good health and happiness.
Cathy Abernathy (grandmother of Isabel Jurado)
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Sunday, January 21, 2007 1:06 PM CST
Hey guys,
What a beautiful, heartfelt post. We are so happy that you are finally in a position to relax and enjoy life again. Wasn't that the goal of the transplant? Mission accomplished.
We love you.
Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Monday, January 15, 2007 9:37 AM CST
Dear Cari and Matt,
As I read your post, I knew how true your words are. You were one of the first to offer me support when Bobby's transplant was scheduled, and I realized, right then, that we had moved over into a new world, and that we would never be the same. Some days I just can't believe the grace that I have felt in the midst of fear. It is as if all the people who have helped us (you included) are angels. And I do think that may be true. Like you, I can sleep a little more easily now, but every day give thanks for the miracles of friedship, good medical care, and the big community of saints.
Always, Robin
Robin Jensen <robin.jensen@vanderbilt.edu>
Nashville, TN USA - Sunday, January 14, 2007 8:00 AM CST
cari,
i'm so glad to hear that things are going so well that you can relax a bit. your family absolutely deserves some happy times in 2007.
tori <toriwillard@mac.com>
durham, nc - Saturday, January 13, 2007 6:44 PM CST
Hi there! Thanks so much for the comment about Frankie. We're hanging in there. I'm so glad to hear that Jessie is still doing so well. I hope her 2007 school year continues on the same positive path.
Take care, and big hugs!
Cynthia, for Frankie
C. DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Monday, January 8, 2007 2:10 PM CST
WoW! I didn't realize how tall Jessie had gotten until I saw the picture of her with Rob. Those are some lomg legs! She is just beautiful.
Love, Dawn
Dawn Wladyka <dmo41374@Aol.com>
Malverne, NY 11565 - Monday, January 1, 2007 6:28 PM CST
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)
BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Sunday, December 31, 2006 10:06 AM CST
Merry Christmas! Thinking of you always.
Love, Dawn, Tony, Faith, AJ, and of course, Virgil
Dawn <dmo41374@aol.com>
- Monday, December 25, 2006 1:38 AM CST
Happy Holidays to you and your family, Jessica!!
thinking of you.
Mommy Koren to bryce
koren <kaadams@charter.net>
durham, nc usa - Sunday, December 24, 2006 8:30 PM CST
Jessie looks so cute. I just wanted to say Hello and that we are thinking of you.
Angie and Angel AJ
www.caringbridge.org/sc/ajhaynes
Angie <a1hardhead@aol.com>
Summerville, sc - Friday, December 22, 2006 8:53 AM CST
It is so good to see Jessie joining more and more activities... she made an adorable cow. it's also so wonderful that you can actually take that first breath cari, now that Jessie is finally of those transplant meds and her immune system is showing a fight to the outer world fears we all live with. Thinking of you and soon to follow in recovery.
Mommy Koren to BRyce
www.caringbridge.org/visit/fightforbryce
koren adams <kaadams@charter.net>
durham, NC usa - Wednesday, December 20, 2006 10:04 PM CST
OK, so just when I think the pictures of Jessie can't possibly get any cuter, I am greeted with the Cow picture! I LOVE IT!!! Did they have fun at the pageant? It sure looks like they did.
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, December 17, 2006 11:47 PM CST
Dear Matt and Cari,
Blessings of the season to you! And blessings (belatedly) on Dylan's baptism. I loved reading your story. And, today, I will be thinking about that Christmas pageant at NHCC - one that I know very well. Bobby went from a sheep in the manger to Herod. I am not sure whether he ever played Joseph, because he made SUCH a good King Herod that they kept asking him to reprise that wicked chuckle.
I still keep you in my prayers, and I will do especially today. We are so blessed - all of us - in our connections to one another.
Peace and Love, Robin
Robin Jensen <robin.jensen@vanderbilt.edu>
Nashville, TN USA - Sunday, December 17, 2006 7:17 AM CST
Just thinking of you four and all of the remarkable, strong families you've encountered. You and they are always in our hearts. Have joyous preparations for your Christmas! We're putting out decorations from Nana's and remembering the good bustle of family...Love from Chicago,
Nora, Matthew, and Annie
The Flynnches <nkflynn@yahoo.com>
Chicago, IL - Tuesday, December 12, 2006 8:55 AM CST
Congratulations on weaning those immuno-suppressants!!!! That is so very exciting! I'm hoping all goes well, and you can go on to lead a drug-free life. Jessie, you are my inspiration. I feel as if this last big wean signifies an end to transplant recovery. I'm so proud of you lil darlin'. I hope Cooper's FK 506 wean goes smoothly like yours.
Hope & Prayers-
Shannon Rieg...Cooper's mOM
Shannon Rieg
- Thursday, December 7, 2006 9:03 PM CST
I was thinking back to this time last year and remembering how you were disappointed that you couldn't have a real tree. i'm so happy you were able to get a real one and that you all had so much fun at the nursery!
Love,
dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Thursday, November 30, 2006 8:22 PM CST
Thanks for the new pictures, they're terrific. We thought about all of you last Thursday, happy to hear the "bird" went well. Talk to you soon, our love to Jess and Dylan.
Barry Midwood <mbarry516@msn.com>
Downingtown, PA - Thursday, November 30, 2006 12:38 AM CST
I hope you all had a wonderful Thanksgiving Holiday! I glad the surgery went well. I wanted to tell you about my Jesse. He had knots in both of his achilles tendons, and docs didn't really want to do anything about it really. I started him with some neuromuscular massage and connective tissue massage and the therapist massaged those knots out in 2 seesions. They remain gone still 4 months later. It might be something worth checking into for tightness in the muscles as well.
I check in often and keep your family in prayer!
Hugs and love,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Sunday, November 26, 2006 4:16 PM CST
Happy Thanksgiving! I'm so happy to hear the surgery went well.
I know that Jessie looks alot different than she did this time last year, but from the photos you've posted on the site, I think she looks much better- certainly alot healthier. And she's come so far. Now she's a happy little pre-schooler!I can hardly wait to see the card. I'm trying to figure out a way to wrangle my guys in for the perfect shot. As you are well aware, getting the kiddies and the canine all happy in one ahot is pretty hard!
Love, dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Thursday, November 23, 2006 10:42 PM CST
happy thanksgiving aufmans! hope all is well.
tori <toriwillard@mac.com>
durham, nc - Thursday, November 23, 2006 9:26 PM CST
alyssa <sabiemc@aol.com>
sacramento, ca usa - Wednesday, November 22, 2006 10:19 PM CST
I will pray for Olivia's family. And always for Jessie, Dylan, Cari and Matt. God Bless.
Barry
Barry Midwood <mbarry516@msn.com>
Downingtown, PA - Monday, November 20, 2006 9:28 AM CST
I'm sorry to hear the sad news for your friends...thinking of you guys often...
Brent and Christine Midwood
Stow, MA USA - Thursday, November 16, 2006 9:28 AM CST
Hi Matt and Cari,
I just wanted to stop by to let you know that we are out here thinking of you in Nashville (and Minneapolis). Bobby asked after you all the other day and I urged him to check this site. This last was a beautiful post, Matt. We will continue to keep you in our prayers.
Warmly, Robin
Robin Jensen <robin.jensen@vanderbilt.edu>
Nashville, TN USA - Monday, November 13, 2006 6:36 AM CST
So happy to hear that school is going well! Faith loves it too.
WE've been checking in on little Bryce as well. I'm sure seeing Jessie's progress must be very encouraging for his mom and dad.
Love,
Dawn, Tony, Faith, AJ and Virgil
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY - Thursday, November 2, 2006 10:22 PM CST
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)
BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Tuesday, October 31, 2006 9:39 AM CST
Hi guys,
It's been a while. What do your little pumpkins have planned for Halloween?
Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Monday, October 30, 2006 4:08 PM CST
Just a quick note to say "hi" and hope that you all are enjoying our Northeast fall weather! It's gorgeous today here in CT, so I figure you're enjoying the same cool sunny day.
I hope you guys are well, and so glad to hear that Jessie is loving school!
Take care, Hugs Love & Prayers,
Cynthia, Frank & Frankie
the dematteis family <cynthia@frankiepants.com>
hamden, ct - Monday, October 16, 2006 12:03 AM CDT
Happy to hear about Jesse's first day of school. Are you sure that one of the dog's didn't eat Dylan's cake? Mary used to be an expert at sneaking things which she didn't want to eat to the dogs. Lorraine and Ron
Lorraine M. Weil <Lorraine_Weil@ctb.uscourts.gov >
Hamden , CT USA - Wednesday, October 11, 2006 11:38 AM CDT
I was so happy to hear about the first day of school and Dylan's birthday. I love that Jessie's little friends are so protective and that she clearly doesn't have separation issues. With all she's been through, it's amazing that she does not fear school. Alot of Faith's classmates cry every day, and they have had none of the obstacles that Jessie had. Just one more example of something you already know...she's a phenomenal kid and you've obviously helped her develop her self confidence. You should be really proud. The first day of nursery school is such a big deal, and I'm so happy that Jessie gets to enjoy this experience.
Love,
Dawn and crew
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, October 8, 2006 7:36 PM CDT
So glad to hear that things are settling down a bit - although two kids with a stomach bug doesn't sound like fun to me! All the best...
Brent and Christine Midwood
Stow, MA USA - Tuesday, October 3, 2006 9:01 AM CDT
I can hardly wait for some first day of school pics! I can't believe it's finally here!
Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Monday, October 2, 2006 3:31 PM CDT
Cari,
This is Chris Adams, Bryces dad. I just wanted to thank you for sharing your experiences with my wife Koren. It is tough not to be there for her right now, and it helps to know she has support there and from those who have been through the transplant process already. I am heading down to Duke for transplant day and cant wait to see them. I wish I could take all the girls as well but I think it would be very difficult to get the girls to leave after a couple of days with them, and if one of them got sick in the process of getting there and couldnt see them it would be devastating. Thanks again for being so supportive, I still can't believe this is happening.
Chris Adams
774-229-6973 cell
508-943-0980 home
Chris Adams <cmadams@charter.net>
Webster, MA 01570 - Thursday, September 21, 2006 7:47 PM CDT
Hooray for school days! What great news! We're all so excited for future updates about Jessie's first day of school. Much love from Chicago!
Nora, Matthew, and Annie <nkflynn@yahoo.com>
Chicago, IL USA - Wednesday, September 20, 2006 9:09 AM CDT
Yippee!!! What a great report!! I'm sure it wil be exciting starting pre school! My Jesse loves school, I think he would bored at times if not for school. I will keep the ears in prayer.
Many hugs and continued prayer,
Love,
Patty and Jesse MPS III A
P.S. I have been keeping track and saying lots of prayers for Bryce too since he and mommy headed down to Duke.
Patty Taomrino <wordinedge@aol.com>
Balto, MD USA - Tuesday, September 19, 2006 10:16 AM CDT
Yeah, for good news. You have waited a long time to hear some more positive news. Way to go on hanging tough. You guys are awesome parents and Jessie and Dylan are awesome kids.
Tonya and Noelle
Tonya Naylor <tpawlow@yahoo.com>
- Monday, September 18, 2006 7:58 AM CDT
It was very nice to read the good news regarding Jessie. She's a very brave little girl.
Evan Freiberg
Baldwin, NY US - Sunday, September 17, 2006 4:12 PM CDT
Wow! I'm so happy that the trip to Duke was so positive. A great MRI, improved motor skills, a strong immune system AND a YES to preschool!!!!!!!!!! You must feel like it's Christmas in September. Seems like she's turned her biggest corner since her transplant.
I'm so happy I checked in today. This is the best news!
Dawn <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, September 17, 2006 3:29 PM CDT
Hello Carri, we have had our prayers answered this afternoon and our insurance has approved the transplant for Bryce in its entirety. I'm sory I didn't get back to your e-mail sooner, I would lie to meet you as well. when you know your schedule let me know so we can figure out when. Thank you for letting us know you are there. We don't know everyone that has been thru this before, just locating some families here and there. look forward to meeting you. Koren,Bryce's mom
koren <kaadams@charter.net>
- Thursday, September 7, 2006 2:57 PM CDT
Love those birthday pictures! It looks like Jessie enjoyed her celebration with or without a big gathering. And Kate is happy that one little image of Jessie's mama snuck into the picture array :) She likes keeping up with the moms. Happy, happy birthday, little Jessie. We wish all the best things in the world for you.
We love you,
Alison and Kate
Alison Kirk <kirkplace@comcast.net>
Nashville, TN - Saturday, September 2, 2006 6:30 AM CDT
Happy 4th Birthday Jessie !!! It is so wonderful to see you enjoying your special day. I look forward to reading your Mom and Dad's notes and seeing your smiling face. My love and prayers to you and your Mommy and Daddy.
Agnes Wladyka <Wladyka@aol.com>
Mountainside, NJ USA - Friday, September 1, 2006 9:09 AM CDT
Happy Birthday, Jessie. You look so cute eating your cake. I think your mom and dad got a good present too hearing the positive comments from the doctor regarding your gentle, kind manner. You are a great kid! Your friends from Wisconsin. Tonya, Dave, Tessa and Noelle
Tonya Naylor <tpawlow@yahoo.com>
K', WI - Thursday, August 31, 2006 9:35 PM CDT
Happy Birthday Jessie!
The BIG 04!! You look great with your Wiggles cake. I bet someone who loves you baked that cake.
Hugs to you Birthday Girl
Love
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Wednesday, August 30, 2006 5:09 PM CDT
A very happy birthday, Jessie! Glad to hear that you're feeling better...it's no fun to be sick on your birthday!
Brent and Christine Midwood
Stow, MA USA - Tuesday, August 29, 2006 1:20 PM CDT
Happy Birthday Jesse!!! I love the pictures but they made me hungry. Izzy loves the Wiggles too. Hoping this year of your life is alot less eventful than the last. HUGS!!!
Leslie Jurado <lesliejurado@rhtc.net>
- Monday, August 28, 2006 9:04 PM CDT
happy birthday jessie!! i love your wiggles cake - i miss watching wiggles with you :)
tori <toriwillard@mac.com>
durham, nc - Monday, August 28, 2006 9:02 PM CDT
Happy Birthday Jessie! Uncle Dan and I can't wait to see you in a couple of weeks. We will have to have a special little cake for your birthday. 4 years old- what a big girl!
We love you so much, my special girl!
Love, Auntie Sara and Uncle Dan
Sara Daley <npsara@comcast.net>
Thorndale, PA - Monday, August 28, 2006 11:55 AM CDT
Hey Jessie-
We hope you have a very happy birthday! We love you!
Love,
Dawn, Tony, Faith, AJ and Virgil
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, August 27, 2006 3:42 PM CDT
Hi, Matt, Cari, Jessie & Dylan - Just wanted to say hi and that my thoughts and prayers are with you always. Oh, and that I'm not surprised that the child of my most easy-going cousin gets along with everyone so well! Much love, Eileen
Eileen <eileenflynn@gmail.com>
Chicago, IL USA - Wednesday, August 2, 2006 7:45 PM CDT
Hi Cari, I just wanted to let you know I stopped by to check in n read hte latest updats. Like Jenn am not sure I have ever signed your guestbook but I have been here - thank you for always giving advice on the Forum, you are great! Love, Erica
Erica Thiel, Beaver Dam, WI www.caringbridge.org/wi/ericathiel <scheiecat@yahoo.com>
- Saturday, July 29, 2006 10:56 PM CDT
Hello Jessie and Cari!! Glad to hear everything is going well. Hugs,
Sheila and Shelby www.caringbridge.com/tx/shelby <sjgeorge1013@cox.net>
Edmond, OK USA - Tuesday, July 25, 2006 10:51 AM CDT
I just wanted to stop by and say HI! (I don't think I have ever signed your guestbook before.) Jessie is a doll baby!! I LOVE all the pictures on her front page!
It's great that she is doing good!! I will be keeping her in my prayers!! Hope things continue to go smooothly!
www.caringbridge.org/ky/tylerdeskins
Jenn Deskins <tylersmommy11304@yahoo.com>
- Monday, July 24, 2006 10:27 AM CDT
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@Hotmail.com>
- Sunday, July 23, 2006 1:23 AM CDT
I'm so happy school is going well for Jessie. Hopefully she'll be able to play with some classmates soon.
It's probably just as good you decided to pstpone the Duke visit. The weather there must be miserable, and it sounds like Jessie is enjoying her summer right where she is.
Love, Dawn, Tony, Faith, AJ and Virgil
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY - Thursday, July 20, 2006 7:10 PM CDT
Cari and Matt,
How great to get a night out (and what GREAT service)!! And, how nice is it to get to bring Jessie to therapy so she can get a change of scenery! I really believe Frankie will also perk up more (if that's even possible) when allowed out of the house to play with someone else's toys. I think the kids will also respond amazingly with other children. Right now, Frankie's reflection in the mirror is his best friend!
Hope all is well and that Dylan will agree with the walking request. I'll cross my fingers for you! :)
Take care, hugs & prayers,
Cynthia, Frank & Frankie
The DeMatteis Family <cynthia@frankiepants.com>
Hamden, ct - Wednesday, July 12, 2006 7:30 AM CDT
Wow! It sounds like things are going really well after a bit of a rough patch. We will miss watching Jessie improve and Dylan grow. We have been in Atlanta a week now and are starting to settle in a bit. We went to see the Braves last week and Bekah's first comment was "This isn't like Fenway!" Take care.
Kari
Atlanta , GA USA - Tuesday, July 11, 2006 2:17 PM CDT
Yeah to no steroids, Yeah to getting out, and Yeah to Outside Therapy. What more could a transplant parent want? Ha, ha, ha....
Sending all of our warm thoughts and wishes from the west.
Tonya and Noelle Naylor
The Naylor Family <tpawlow@yahoo.com>
Kenosha , WI - Saturday, July 8, 2006 1:32 PM CDT
so glad to see such a happy update! i cant believe dylan's so old already - though i'm sure it's weirder for you! glad to hear that jessie's getting to get out and enjoy some new activities...next stop lots of playdates with lots of little friends!
tori <toriwillard@mac.com>
durham, nc - Thursday, July 6, 2006 9:29 PM CDT
Hi Jess, Dylan, Cari and Matt.
We hear we'll be seeing you on your next trip south.
Can't wait!!
We send our love and support today. God Bless.
Love, Karen and Barry
Barry and Karen Midwood <mbarry516@msn.com>
Downingtown, PA - Thursday, July 6, 2006 10:00 AM CDT
Thinking and praying for you daily!
Hugs,
Patty and Jesse MPS III A
Patty Taomino <wordinedge@aol.com>
Balto, MD USA - Saturday, July 1, 2006 7:45 PM CDT
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, July 1, 2006 5:36 PM CDT
Jessie,
Happy 1st Transplant Birthday! :) I know we're a bit late, but I'm sure you know that we have been praying and sending you big hugs across the miles to you, Dylan and your mommy and daddy.
One day, when you and Frankie are up to seeing other kids, we'd love to see you and play with you and Dylan!
Please take care and big smoochies!!!
Frankie, Cynthia & Frank
The DeMatteis Family <cynthia@frankiepants.com>
Hamden, CT - Thursday, June 29, 2006 1:18 PM CDT
Matt and Cari - One year - what a milestone. I can imagine that the ability now, after this unimaginably intense year, to adjust your focus from constant immediate challenges to the longer-term uncertainties must be very difficult. I am glad to hear that you and Cari were able to get out and have some fun together! I am also glad to hear that Jessie is needing fewer medications! Our thoughts are with you. All the best, Nicola and Jeannot
Nicola Lemay <nicola.lemay@wilmerhale.com>
- Thursday, June 29, 2006 11:03 AM CDT
Hey guys,
Just checking in to say we're thinking of you. Hope you get a chance to watch the game tonite. Tony is a big Met fan, so we'll be watching the series, especially tonite with Pedro pitching. It should be fun. I'm sure your little Sox fans will be cheering like crazy.
Love, Dawn
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Wednesday, June 28, 2006 4:39 PM CDT
Happy Anniversary. What a year it's been! We think of you often...and hope for easier times in the coming year. All the best, Brent and Christy
Brent and Christine Midwood
Stow, MA USA - Tuesday, June 27, 2006 8:34 AM CDT
I thought I would stop in and check on Jessica. Happy one year Anniversary! ( a few days late) I sure the past year has been one rollercoaster ride to say the least! I am glad she doing well overall! I will continue to keep her in prayer that she keeps doing well as you take her off the last couple of drugs!
Hugs and prayers,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Monday, June 26, 2006 7:52 PM CDT
Happy "Anniversary". I can't believe it's been a year, but at the same time, it feels like forever ago... we are so blessed to have you count us amoung your friends. You both have shown us grace, strength, and the true meaning of unconditional love. Dylan and Jess are so lucky to have parents like you. Know that we are always here for you, day after day, year after year- we will count our blessings and be thankful for each moment we have with your family.
Love always,
Sara and Dan Daley
Sara Daley <npsara@comcast.net>
Thorndale, PA - Monday, June 26, 2006 9:54 AM CDT
Hi,
You guys have surely been through many trials and tribulations and we admire you. At the same time we are glad that you had some time for yourselves. We wanted you to know we love you and pray for you that you will be strong enough to continue your mission for Jesse to have a good life.
Dylan is certainly a beautiful little boy.
Over here on Putnam Street here in Bennington Uncle Jim will be celebrating his 65th birthday on Tuesday. Believe me he is not handling it very well. I can't believe that it was 5 years ago when we all were together to celebrate his 60th birthday.
God Bless You Guys and don't ever forget We Love You
Always in our thoughts The Kings <mkschneski@yahoo.com>
Bennington, VT USA - Sunday, June 25, 2006 8:13 AM CDT
Thinking of you in the good and bad times. Life sure is interesting. We are always thinking about you and wishing more good times your way.
Tonya and Noelle
The Naylor Family <tpawlow@yahoo.com>
Kenosha, WI - Monday, June 19, 2006 9:48 PM CDT
i love the collage of pictures and i miss those big smiles from the days back on 5200! happy father's day to matt and hello to you all!
tori <toriwillard@mac.com>
durham, nc - Monday, June 19, 2006 3:54 PM CDT
Happy Father's Day! Hope the weather in Massachusetts is as gorgeous as it is here today.
Love, Dawn, Tony, Faith, AJ and Virgil
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, June 18, 2006 11:29 AM CDT
Just stopping in to visit Jessie and see how she is doing! I am so happy she is doing well! I pray for her daily! I hope you all have a wonderful Father's Day and that the weather will be nice too, without so much rain!
Hugs and Love,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Thursday, June 15, 2006 8:37 PM CDT
LOVE the photos!! Jessica not only looks soooo adorable...but sooooo happy too!! We're starting to see some smiles from Benjy, but with his disease it sometimes takes 4 years...we're hoping that since we're already seeing some glimpses that we won't have to wait that long! RE: softball...never say never. We are in such an exciting time of scientific advancement and progress...I'm betting that our little pioneers of today will be tomorrow's leaders!
Elizabeth, Josh and Benjy <ehlinko@aol.com>
- Thursday, June 15, 2006 4:17 PM CDT
The pictures are so cute! Glad to hear that things are going well. I pray for you all daily.
Lorraine Weil
Hamden, lCt USA - Monday, June 12, 2006 3:13 PM CDT
Cari and Matt,
I love the photo display! Glad that Jessie is doing better... and I hope Dylan is keeping his socks on! See you soon. Laura
Laura Marhoefer <lmmarhoe@hotmail.com>
Cambridge, MA - Monday, June 12, 2006 9:11 AM CDT
Matt, Cari and kids -
We want you to know that despite what the professionals tell you, the Scotto family is still keeping up with you as often as you post on your website! We know you are very busy with the kids and catching up with old friends from the past is not easy to do right now, but we want to let you know that we are here, sending you love and good thoughts and keeping tabs on your beautiful family.
Jamie, Sara and the Scotto kids <scottofamily@comcast.net>
Simsbury, CT - Monday, June 12, 2006 8:20 AM CDT
I LOVE the new look of your homepage!
Love,
Dawn
Dawn <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, June 11, 2006 5:02 PM CDT
I feel like I've just had a nice little visit with you. It was overdue. It is so hard to get onto the computer and even harder to pick only one DukeFamily site to check! You are remembered in prayer between visits. I'm happy to read good news. Eating AND sleeping! Rash relief! Woohoo! I love the photo with the chicken nugget, because I remember how powerful a chicken nugget moment can be. (So does the 5100 staff!) Enjoy!
Blessings,
Jean...
... and the Wrens <jadubilu@netscape.net>
Charlotte, NC PBMT - Friday, June 9, 2006 8:04 PM CDT
We are so glad to hear Jessie is doing well. Thanks for keeping us all posted.
Martha, Tim and John <marthafrahm@comcast.net>
Winchester, MA USA - Thursday, June 8, 2006 7:52 PM CDT
Just dropped by to say Hi and see how you all are doing. I hope that Jessie continues to recover at a steady pace.
Hugs,
Sheila and Shelby (MPS IIIA) www.caringbridge.com/tx/shelby <sjgeorge1013@cox.net>
Edmond, OK USA - Sunday, June 4, 2006 9:16 PM CDT
Isn't that all the truth? I commend you guys for all you have done for your family, your daughter, and your son. It has been a true roller coaster ride and you guys are still riding. You have to be a special person to stay on the ride of which you are.
Tonya and Noelle
Tonya Naylor <tpawlow@yahoo.com>
- Wednesday, May 31, 2006 12:24 AM CDT
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, May 26, 2006 8:27 PM CDT
I am so happy that Jessie is doing so well after the transplant! I pray that all continues to go well! She is a beautiful young lady!
Have a wonderful Holiday weekend. I hope the rain has stopped for while!
Hugs and continued prayers,
Patty and Jesse MPS IIIA
Lysosomal Storage Diseases Support Forum
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Friday, May 26, 2006 4:29 PM CDT
I was so happy to read your journal entry that said "She ate well, slept well, and was happy except for when Dylan was making it his mission to annoy her!" It sounds like the kids are finally getting a chance to enjoy a nice, normal brother-sister relationship! They sure deserve it, and you guys deserve a chance to witness it.
Dawn Wladyka
Malverne, NY` USA - Monday, May 22, 2006 7:05 PM CDT
Guess me and Sheila had the same idea. Jessica is beautiful and I'm so glad that she is doing well after transplant. She will be in my prayers.
http://www.geocities.com/calebwaddell
Kelly Waddell, MPS Forum <kellywaddell@hotmail.com>
Southaven, MS USA - Wednesday, May 17, 2006 1:28 PM CDT
Hello,
I saw your post on the MPS forum and saw the link to your website so I thought I would check it out. I am glad to read that Jessie is doing well after her transplant. Jessie is a precious little girl.
Sheila and Shelby (11, MPS IIIA) www.caringbridge.com/tx/shelby <sjgeorge10!3@cox.net>
Edmond, OK USA - Wednesday, May 17, 2006 9:55 AM CDT
Love the new pics of Rainbow Walk. Between Matt's shirt and Jessie's hat, there is certainly no mistaking the fact that you are from Boston! The weather looked great. Too bad you had to come home to monsoons!
Love, Dawn
Dawn Wladyka <dmo4374@aol.com>
Malverne, NY 11565 - Tuesday, May 16, 2006 11:34 AM CDT
Happy Mother's Day, Cari. To one of the most amazing mothers I know. Jessie and Dylan are so blessed to have you as their mom!
ps-Jessie, we miss you already! Especially Ben.
Sara Daley <npsara@comcast.net>
- Monday, May 15, 2006 7:20 AM CDT
Welcome home! That's fantastic news about your friend Ashley! She sounds like an awesome kid.
BTW, the carseat mirror you guys got us for Faith works great on AJ when he is sitting backwards. Have you tried it on Dylan?
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, May 14, 2006 7:39 PM CDT
Matt and Cari,
Welcome home; great to have you back. All prayers are still with you. We had a great Mothers Day, and hope you did, too. Delivered your car in good health, Love, Mom and Dad
Jim, Eleanor Aufman <aufmanjea@sbcglobal.net>
Bolton, ct - Sunday, May 14, 2006 6:25 PM CDT
Happy Mother's Day!
Love, The Wladyka Family
DAWN <dmo41374@aol.com>
Malverne, NY 11565 - Sunday, May 14, 2006 7:36 AM CDT
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, May 13, 2006 11:35 AM CDT
I'm glad you guys are headed back home - sound like this has been a rough visit - have a safe trip next weekend. Keep your chin up!
Brent and Christine Midwood
Stow, MA USA - Thursday, May 11, 2006 8:33 AM CDT
hi guys,
Well it must feel good to finally have solved the mystery of Jessie's discomfort. I'm grateful it's not GVH and that Dr. Paul does not think the virus is a danger to Jessie.
It's also awesome that you can all be together again soon, especially for Mother's day!
We love you.
Dawn, Tony, Faith, Aj and Virgil
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY USA - Thursday, May 11, 2006 8:18 AM CDT
We are thinking of you all. Lorraine Weil
Lorraine Weil
Hamden , CT USA - Thursday, May 4, 2006 8:37 AM CDT
Hi all,
Sorry we didn't get better news! I am thinking of you and loving you from Philadelphia. Please call if there is anything we can do to help.
Sara Daley <npsara@comcast.net>
Thorndale, PA - Monday, May 1, 2006 3:26 PM CDT
I sent out another request to my band of friends whose prayers got me through a lot. Dawn keeps me posted and you are always in my thoughts and prayers. Dylan's smile is fantastic and can melt your heart but I am sure you know that already. Jessie is such a remarkable little girl and is so lucky to have you guys as her parents. Hope to see you in June at the BC reunion. You are in my prayers as always, Love
Agnes Wladyka <Wladyka@aol.com>
Mountainside, NJ - Monday, May 1, 2006 11:50 AM CDT
Forgot to say on my last post that I hope you remembered the satellite radio, B/C tonight's game should be great! Hope you get a chance to listen.
Love, Dawn
DawnWladyka <dmo41374@aol.com>
Malverne, NY USA - Monday, May 1, 2006 7:59 AM CDT
Dear Cari,
We are praying for you all! I am glad to read that you are at Duke and that Dr Paul is now in control of the tests ect.
GVHD is not fun! But Duke knows this and knows how to get in under control.
Hope to see you at the walk!
Lots of love!
Mary (Michael's Mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Monday, May 1, 2006 7:35 AM CDT
Hi guys,
Sorry about the mixed results on the tests, but that's great that her immune system seems to be recovering! It's also great that even though you can't be home, the kids are in a place where they are loved and spoiled by the staff. Take advantage of all the extra hands who are willing to hold and hug them!
Thinking of you always, Dawn, Tony, Faith, AJ, and Virgil
Dawn Wladyka
Malverne, NY USA - Monday, May 1, 2006 7:31 AM CDT
Thinking of you and hoping that all is going well with Jessie's evaluation. I know the days must be long. Any chance of slipping down to the pool? We'll be checking in on you. Wave at Kate's parking lot for us.
With love,
Kate and all the Kirks
Alison Kirk
Nashville, TN United States - Wednesday, April 26, 2006 10:47 PM CDT
Matt and Cari -
Hope things are going well this week and that you are receiving good news on Jessie. I'm thinking about you!
Lisa Flynn
- Wednesday, April 26, 2006 11:05 AM CDT
alyssa <sabiemc@aol.com>
orlando, fl usa - Sunday, April 16, 2006 1:08 AM CDT
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 15, 2006 3:07 PM CDT
I've been thinking about you guys lately and visted Jesse's site. I doesn't sound she is out of the woods completely but progress is being made. Wish you a very Happy & Joyous Easter and a Wonderful Spring.
Ed Trainer <edtrainer@att.net>
- Friday, April 14, 2006 7:05 PM CDT
Happy Easter! Let's hope this great weather sticks around and you guys get more outdoor playtime!
Love, The Wladyka Family
Dawn Wladyka <dmo41374@aol.com>
Malverne, NY - Thursday, April 13, 2006 6:41 PM CDT
Happy Easter! Lorraine and Ron Weil
Lorraine M. Weil
Hamden, CT USA - Thursday, April 13, 2006 11:16 AM CDT
Keep your chin up. With the nice weather coming, at least you can take the kids out! Lorraine Weil
Lorraine M. Weil
Hamden , CT USA - Thursday, April 13, 2006 11:14 AM CDT
Hi guys - I'm sure you ARE exhausted after running this marathon for over a year. Keep your chin up and make sure you take time for yourselves. You're in our thoughts and prayers. Hang in there! Brent and Christy
Brent and Christine Midwood
Stow, MA - Monday, April 10, 2006 6:41 AM CDT
Wonderful to read that Jessie is going forward. Dylan is certainly a beautiful baby. Just wanted you to know we are thinking of your family. Many blessings of Easter to you and yours. Cari, I remember holding you in my arms at the Easter Vigil a few years ago when you were baptized.
Love Uncle Jim, Aunt Mary, James and Patrick <mkschneski@yahoo.com>
Bennington, VT - Monday, April 10, 2006 6:38 AM CDT
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 8, 2006 10:49 AM CDT
Hey guys,
I hear you on the list. Boy, does it get old after nine months. Thinking of you always and sending all our left over energy your way.
Tonya and Noelle
Tonya Naylor <tpawlow@yahoo.com>
- Friday, April 7, 2006 7:54 PM CDT
Love the photos you posted! Beautiful, well-loved kids.
Hope Spring brings more fun photo ops for all.
Kim Collins
- Tuesday, April 4, 2006 10:40 AM CDT
Matt and Cari, Jessie and Dylan,
Happy Spring! Hooray for another season and walks around the neighborhood. We both are in awe of your amazing parenting (M + C) and so excited for your growing sibling affections (J + D). (You probably didn't need the parentheses.) Please know that we think of you always. Love, Nora and Matt
Nora Flynn and Matthew Lynch <nkflynn@yahoo.com>
Chicago, IL 60615 - Monday, March 27, 2006 6:17 PM CST
O my God guys, she looks SO MUCH HEALTHIER in the new pics! I guess the fresh air is doing her some good. And Dylan looks so strong arching his little head up.
We'll be up in June for my BC reunion and can hardly wait to see you all.
Dawn <dmo41374@aol.com>
- Sunday, March 26, 2006 9:21 AM CST
Happy St. Pat's guys. Hope you're able to have a nice celebration at home with the kids. Those pictures are great, especially the "smooch."
The fact that Jessie is getting her skills back is the best news! We're so happy!
Dawn, Tony, Faith, AJ and Virgil <dmo41374@aol.com>
Malverne, NY 11565 - Friday, March 17, 2006 3:45 PM CST
Great pictures! I am glad that Jessie is improving now. We keep you all in our prayers. Lorraine and Ron Weil
Lorraine Weil
- Thursday, March 16, 2006 3:47 PM CST
Hello,
I can picture it now and boy do I remember those days! There were a few months that John and Ciara were back in California and that left Tommy, Hunter and myself at Duke. Of course every time we went to clinic, Tommy would take off running in one direction and Hunter would go in the other. I was left standing there looking back and forth wondering which one will cause the most damage, who do I chase first!? Thank God you have wonderful nurses who help you out!
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, March 12, 2006 0:14 AM CST
despite all the craziness, jess and dylan still are adorable! i love the hair! hope things calm down soon....i'm always thinking about you guys!
tori <toriwillard@mac.com>
durham, nc - Thursday, March 9, 2006 5:32 PM CST
Such a rollercoaster! I hope Jessie feels much better really soon. My thoughts are with you. Kisses and hugs to all.
Nicola <nicola.lemay@wilmerhale.com>
- Thursday, March 9, 2006 12:51 AM CST
We hope Jessie is feeling better! Benjy also had a stomach bug...Dr. Kurtzberg cultured everything and determined it was the "small round virus"...apparently also known as the "winter vomit disease"!! Anyway, Benjy's been getting IVIG in his feeding tube for the past 3 weeks and (knock on wood) he's doing remarkably well. Just food for thought...in case they didn't check Jessie for that particular virus. We continue to keep Jessie in our prayers..she certainly is a fighter! Great news about the MRI!!
Elizabeth (and Josh and Benjy) Margulies <ehlinko@aol.com>
New York, NY - Wednesday, March 8, 2006 10:04 PM CST
Jessie,
I hope that you get well quickly and get home fast! If you really want to start eating again, hospital food is NOT the food of choice. We all know this....
hugs to you and your mom and dad!
Mary (Michael's Mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Friday, March 3, 2006 1:56 PM CST
Hang in there -- you're in our thoughts and prayers! May this stay in the hospital be brief!
Brent and Christine Midwood
Stow, MA - Friday, March 3, 2006 7:54 AM CST
Cari & Matt,
We are saying our prayers that it's not GVH in her gut! I hope things go smoothly with Jessie throughout this whole hospital stay.
We are always thinking of you guys,
Take care, big hugs & prayers,
Cynthia, Frank & Frankie
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Thursday, March 2, 2006 11:10 AM CST
I am sorry to hear that Jesse had to be admitted but hopefully the doctors can figure everything out and get her little digestive system working better. You are in my thoughts and prayers. Thank God for friends like your Ingrid!
Leslie Jurado <lesliejurado@rhtc.net>
- Wednesday, March 1, 2006 7:54 PM CST
Okay, Jessie, no checking out the hospitals on the inpatient side! Let's slow down the South Beach (maybe Revere Beach--not quite as glamorous) program and get that stomach working right. We are thinking of you often and we know you are getting good care.
Love from Kate and Alison
Alison Kirk <kirkplace@comcast.net>
Durham, NC USA - Sunday, February 26, 2006 10:25 PM CST
alyssa <sabiemc@aol.com>
orlando, fl usa - Saturday, February 25, 2006 7:33 PM CST
Alicia, Ciara, Hunter & Angel Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, February 25, 2006 11:18 AM CST
thinking about you guys
tori <toriwillard@mac.com>
durham, nc - Friday, February 24, 2006 10:40 PM CST
Dear Matt, Cari, Jessie & Dylan:
Auntie Sara has always kept me up to date on Jessie's condition. Recently she gave me the web address for Jessie's site so that I could be more connected. The truth is, I have always been connected through my prayers for Jessie (and for all of you.) I will continue to pray--now more fervently than ever-- for Jessie's health. Your strength inspires me. Jessica Aufman, what can I say? You are my hero, little one. Thank you for inspiring me with your grace and determination.
love,
Heidi
Heidi Walsh <hei_wal@msn.com>
Manchester, CT USA - Friday, February 24, 2006 4:11 PM CST
Dear Jessie,
You do not want to acquire your friend Kate's eating habits, or lack thereof. Hopefully you will rebound in terms of appetite once you get rid of these awful stomach bugs. It sounds like enough to rob anyone of the desire to eat. Why does all of this have to be so hard for such little people?
Love always,
Alison and Kate Kirk
Alison Kirk <kirkplace@comcast.net>
Durham, NC USA - Thursday, February 23, 2006 11:15 PM CST
Dear Jessie,
I hope that you get feeling better! Stomach aches are the worst. Zofran is Michael's friend and has helped him a lot, so here is hoping that it will help you to!
Hugs to everyone.
Mary (Michael's Mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Tuesday, February 21, 2006 10:44 AM CST
Your family continues to be in ,our thoughts and prayers.
Love Uncle Jim, Aunt Mary, James & Patrick <mkschneski@yahoo.co,>
Bennington, VT USA - Saturday, February 18, 2006 9:24 AM CST
Hope you feel better sweetie...
alyssa <sabiemc@aol.com>
orlando, fl usa - Monday, February 13, 2006 9:10 PM CST
Happy Birthday Matt!
Tori <toriwillard@mac.com>
Durham, NC - Monday, February 13, 2006 3:03 PM CST
Happy Birthday to Matt and Cari!
Miss you all. Kisses to my Jessie and little Dylan too!
Love,
Sara
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Monday, February 13, 2006 11:09 AM CST
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, February 12, 2006 1:49 PM CST
Happy belated birthday Cari. Happy birthday Matt. Despite all the issues realize that every child changes, but every child doesn't really change. That is part of the wonder of parenthood. We think about you lots and continue to pray for all of you.
Aunt Regina and Uncle Terry
Regina and Terence Flynn
Chicago, IL USA - Saturday, February 11, 2006 7:10 AM CST
I have followed Jessie since I learned about her after my granddaughter's Sanfilippo diagnosis last May(caringbridge.org/sc/isabel). Jessie seems to be a strong and amazingly resilient child. I pray that all those annoying side effects of transplant will soon subside and she can resume the normal day to day activities of a healthy little girl. I will keep your family in my prayers.
Cathy Abernathy <cabernat@chestertel.com>
chester, sc - Tuesday, February 7, 2006 9:42 PM CST
Just a quick note to say that we're thinking of and praying for all of you. I try to stay positive for Frankie, but we all know there are good days and there are bad days. Thankfully, family and friends help us through the not so great days. Please let me know if there's anything we can do to help.
Also, happy belated birthday, Cari!
Hugs & prayers,
Cynthia
Cynthia DeMatteis <cynthia@frankiepants.com>
Hamden, ct - Monday, February 6, 2006 8:23 AM CST
We are praying for little Jessie, she is such a strong, brave little girl and we know in our hearts that she will amaze everyone!
Elizabeth, Josh and Benjy (former "neighbors" at 5200) <ehlinko@aol.com>
New York, NY - Saturday, January 28, 2006 12:28 AM CST
We are sorry that the news is not better. We will continue to pray for you all. Lorraine & Ron Weil
Lorraine M. Weil <Lorraine_Weil@ctb.uscourts.gov>
Hamden, CT USA - Thursday, January 26, 2006 1:20 PM CST
We're sorry to hear that the news wasn't what you had hoped - keep your chin up. The four of you are in our thoughts and prayers -- hope to see you in the Spring once cold and flu season has passed. All the best...
Brent and Christine Midwood
Stow, MA - Monday, January 23, 2006 6:42 AM CST
I just wanted to stop and say hello. I check on Jessie and your family about every night. I miss my Duke family so. Through the whole 6 months we were there we met so many wonderful familes and learned how to be strong for our AJ even though I wanted to give up after the first TP didn't work. Don't give up mircles do happen and Jessie needs your strenght now more than ever...
Love to you all,
Angie and Angel AJ
www.caringbridge.org/sc/ajhaynes
Angie Haynes <Ahaynes199@aol.com>
Summerville , SC - Sunday, January 22, 2006 7:03 PM CST
so sorry to hear that the results were not as good as hoped. sucks. i'm thinking about you guys.
tori <toriwillard@mac.com>
Durham, NC - Sunday, January 22, 2006 11:24 AM CST
Im sorry about the results of this past week. Praying for you all...
alyssa <sabiemc@aol.com>
orlando, fl usa - Saturday, January 21, 2006 9:34 PM CST
Hey! It was great to see you if only for the second that we had in the hallway! You all look so good to the eyes!
Hugs all the way around.
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Friday, January 20, 2006 8:12 AM CST
Hi strangers! I just wanted to pop you a note to say "hi" and check in on Jessie and Dylan. I'm sorry to read about Jessie's persistent rash. But, I'm sure the visit back down to Duke will ease your minds just that much more.
The clinic in Boston sounds wonderfl! I'm kinda jealous. There is only one isolation room at Frankie's clinic. Thankfully, he's really the only child that really needs it, so he takes precedence.
I hope the two little ones are doing well.
Best wishes and many prayers!
Cynthia, Frank & Frankie
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Wednesday, January 18, 2006 5:11 PM CST
Hello!
I just wanted to pop in and say hello and to let you know that I was thinking of you!
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Monday, January 16, 2006 12:11 AM CST
Happy New Year! May this year have only good things for you all. Lorraine & Ron Weil
Lorraine M. Weil
Hamden, CT USA - Tuesday, January 3, 2006 12:59 AM CST
alyssa <sabiemc@aol.com>
orlando, fl usa - Sunday, January 1, 2006 6:58 PM CST
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, December 31, 2005 0:43 AM CST
alyssa <sabiemc@aol.com>
orlando, fl usa - Sunday, December 25, 2005 10:58 AM CST
Wishing you all a very MERRY CHRISTMAS! Our thoughts and prayers are with you all this holiday season. So glad to hear Jessie is doing so well and enjoying her younger brother!
We too enter the new year with hope.
Give your little ones hugs from us! Hopefully, we can meet up at the 9month study visit!
Take care, God Bless,
Cynthia, Frank & Frankie DeMatteis
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Saturday, December 24, 2005 10:21 PM CST
Happy Christmas Jessie, Cari, Matt & Dylan! See you in January :)
tori Willard <toriwillard@mac.com>
Durham, NC - Saturday, December 24, 2005 3:20 PM CST
We are glad to see that things continue to progress. We know that Ron is looking to see you all when he comes home for Christmas. We continue to keep you all in our prayers, particularly at this special time of the year. Lorraine (& Ron) Weil
Lorraine M. Weil
Hamden, CT USA - Friday, December 16, 2005 3:16 PM CST
You have two beautiful children! Prayers and hugs from one MPSIIIA transplant family to another.
Donna Reed (Lauren's grandmother) <donna@azdonna.com - www.savelaurenreed.com>
Mesa, AZ - Tuesday, December 13, 2005 11:41 AM CST
Hang in there with the skin GVH. The steriod treatment is brutal but it does work. Were thinking about you guys around Christmas as well as all of our MPS kids!
Merry Christmas and Happy Holidays,
The Medici's
Olivia Medici <oliviaswish@hotmail.com>
- Monday, December 12, 2005 10:54 PM CST
Your tender care and love for Jessica is inspiring, Matt and Cari! I am completely humbled by it. Let me know if I can do anything to help your family through this.
Love,
Gaby
Gabriella Valenzuela <valenz@bu.edu>
Brookline, MA USA - Thursday, December 8, 2005 11:57 AM CST
great new pictures! glad to hear you guys are doing so well and that jessie is now enjoying getting her blood pressure taken - i'm shocked! miss you guys but i'm definitely looking forward to seeing you in january....so crazy that it's almost been six months!
tori <toriwillard@mac.com>
durham, nc - Wednesday, December 7, 2005 9:24 PM CST
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, November 30, 2005 12:50 AM CST
HAPPY THANKSGIVING!!! We hope all is well with the Aufman clan! Sending you WARM thoughts across the state line!
Big Hugs,
Cynthia, Frank & Frankie
Cynthia DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Thursday, November 24, 2005 8:58 PM CST
alyssa <sabiemc@aol.com>
orlando, fl usa - Thursday, November 24, 2005 10:10 AM CST
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, November 24, 2005 0:04 AM CST
i'm so excited to hear that things are going so well for you! i miss my weekly visits with you guys but am happy that you get to be enjoying yourselves at home! thought you would be interested to know that i move into my new house tomorrow and as soon as i make it to the store, jessie's picture will be in a place of honor on my mantle!
jessie's best buddy, tori <toriwillard@mac.com>
durham, nc - Thursday, November 17, 2005 1:51 PM CST
Hi!! I just wanted to let you know that I've been thinking about all of you and I'm so excited to meet the new baby! Um, that was my unsubtle attempt at inviting myself to drop by! I just talked to Meredith and she had a great time!! Love, Lindsay
Lindsay Osborne <lindsayoz@hotmail.com>
Orlando, FL USA - Friday, November 11, 2005 3:10 PM CST
yipee! you're home!!! how wonderful that word is- isn't it? we are so proud of all of you, for your courage and grace during an impossible time. we love you all!
Dan and Sara Daley
Thorndale, PA - Tuesday, November 8, 2005 3:55 PM CST
Happy Day, Happy Day! So glad you are home! Cari, I bet your own bed never has felt so nice.
Hugs to all of you!
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
Asheville, NC - Monday, November 7, 2005 9:37 AM CST
I am so thrilled that you are coming back to Boston. Congratulations! I can't wait to see you all again. Good luck moving. If you need help once you're back in Boston, please let me know.
Laura Marhoefer <lmmarhoe@hotmail.com>
Cambridge, MA - Thursday, November 3, 2005 9:51 AM CST
We are looking forward to seeing the four of you, and helping out in a small way with your move North.
Love, Nana and Grandpa.
Jim and Eleanor (Grandpa and Nana) <aufmanjea@msn.com>
Bolton, CT usa - Thursday, November 3, 2005 7:18 AM CST
happy halloween miss jess!
tori <toriwillard@mac.com>
durham, nc - Monday, October 31, 2005 6:53 PM CST
alyssa <sabiemc@aol.com>
orlando, fl usa - Monday, October 31, 2005 7:30 AM CST
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, October 30, 2005 9:05 PM CST
Matt & Cari: The picture of the two children is so sweet! It looks as if Jessie is holding a doll. We hope that Cari feels better soon. Those are big muscles that were cut and I know that it takes a while to heal. We pray for you all always. Lorraine Weil
Lorraine M. Weil
- Tuesday, October 25, 2005 8:48 AM CDT
Hi Jessie! Hope you're line removal went well today - I'm very excited to come see you on Friday! I hope you're taking good care of your mom and baby brother...your mom could probably use some more of your famous hugs!
tori <toriwillard@mac.com>
durham, nc - Wednesday, October 19, 2005 2:42 PM CDT
Its been a few weeks since I logged on. What a lot has happened! Congratulations to all three of you. I hope the good news continues to come. Take care and God bless all of you!
Nikki <nudovich@pprsr.org>
Naples, NY USA - Tuesday, October 18, 2005 10:59 AM CDT
Dear Cari!
You are one heck of a woman! I hope that the pain is going a way and that you are able to at least take care of yourself. I know that you have the best of help with Matt and family coming in - plus the nurse.
Hugs to you and your beautiful children (isn't that a great word - "children").
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
Asheville, NC - Tuesday, October 18, 2005 7:18 AM CDT
Congratulations and best wishes on the new arrival! We look forward to meeting him in MA.
Sally Brickell <brickland6@rcn.com>
Newton, MA USA - Monday, October 17, 2005 10:13 AM CDT
Hi, All!
Well, it sounds like you had quite the exciting beginning to an otherwise calm weekend???!! Let's just say that thank goodness for double checking blood before transfusions!! We've had a couple of false alarms, too, and regardless of the chaos, it's nice to get to clinic expecting to be there for hours, only to be told "you're free to go"!
We hope this note also finds Cari doing well with the incision.
Sending our best, good thoughts and prayers!
Cynthia, Frank & Frankie
CFF DeMatteis <cynthia@frankiepants.com>
Hamden, ct - Sunday, October 16, 2005 10:59 PM CDT
Yay! I am so glad to hear everyone is doing well, and that all are recovering and adjusting to life with a new little one. I am amazed and completely blown away by all of you--Matt, by your tireless commuting back & forth and hard work to support your family; Cari, by your ceaseless love and care taking of Jessie (not to mention bringing Dylan into this world); Jessie, by your perseverance and toughness through an incredibly difficult ordeal; and Dylan, by your entrance into this world and the blessings you bring with it.
I can't wait to have you all back in MA.
Anna
Watertown, MA USA - Sunday, October 16, 2005 9:54 PM CDT
Congrats on your new addition! Dylan looks adorable! I hope you're all getting some rest. You guys are amazing. Best, best wishes, Nicole
Nicole Henning
Winchester, MA USA - Friday, October 14, 2005 7:05 AM CDT
Dear Jessie,
You are getting to be one cutie pie girl! Wish we where there in person so I could maybe get a hug from you - not that you ever looked my way. I am glad that your Mommy is home and so is little Dylan Robert.
You must be really proud to be a big sister.
Hugs to you!
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
Asheville, NC - Tuesday, October 11, 2005 9:31 AM CDT
Cari, Matt, Jessie and Dylan!
It's got to be great to all be together now!!! We've been thinking of you and hoping that everyone is adjusting well, and it appears that everything is going smoothly.
Glad to hear that Jessie's rash is gone. It's one step closer to the real discharge!!!
Many thoughts and prayers to all of you,
Cynthia, Frank & Frankie
Cynthia, Frank & Frankie DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Monday, October 10, 2005 1:14 PM CDT
Cari, Matt, and Jessie,
Congratulations on the newest member to your family. I can't wait to see all of you very soon. I continue to pray for Jessie's progress, and for the extra energy you'll need to care for both of them! Love, Laura
Laura Marhoefer <lmmarhoe@hotmail.com>
Cambridge, MA USA - Sunday, October 9, 2005 8:01 PM CDT
Congrats on the homecoming! I can't wait to meet the newest edition!
Tori <toriwillard@mac.com>
Durham, NC - Sunday, October 9, 2005 3:53 PM CDT
Hi Jessie, tomdodno11 100 1,000,000 and a dog. I hope you get a dog. And I hope you get a Cheetah and everything you need. 4
Love, Dominick
I told you, I type exactly what he tells me. He thinks he is learning to spell.
Congratulations! We can't wait to meet Dylan. I can only imagine how exhausted you must be. Take care of yourselves.
Kari <kmiller371@comcast.net>
Newton Highlands, MA - Saturday, October 8, 2005 8:41 PM CDT
Congratulations on the birth of Dylan Robert!! He is a complete cutie pie. Best wishes to the entire newly-expanded Aufman family!!
Chrissie Watts Johnston <cbwatts9@aol.com>
Boston, MA - Thursday, October 6, 2005 6:54 PM CDT
Congratulations on the birth of Dylan! He is beautiful! I am also very glad to hear that Jessie's rash has been clearing up. All great news! Love, Nicola
Nicola Lemay <nicola.lemay@wilmerhale.com>
Boston, MA USA - Thursday, October 6, 2005 1:08 PM CDT
Congratulations on the birth of the ultra-adorable Dylan Robert! Our sincere best wishes and prayers for Jessica.
Martha, Tim and John Robert.
Martha Nahill Frahm <mfrahm@goulstonstorrs.com>
- Thursday, October 6, 2005 9:50 AM CDT
Congratulations on Dylan Robert's birth and his welcome into your wonderful family. Now Jessie has a new brother to bring home to Massachusetts! God's blessings and love to you all,
Janice and Tom Fletcher, Christine and Megan
Janic e Fletcher <Fletcher1@rcn.com>
Newton, MA USA - Wednesday, October 5, 2005 8:26 PM CDT
Congradulations, what wonderful news! Blessings on you all. Lorraine Weil
Lorraine M. Weil <lorraine_weil@ctb.uscourts.gov>
Hamden, CT USA - Wednesday, October 5, 2005 12:50 AM CDT
Cari, Matt, Jessie and Dylan!!! Congratulations!!! Dylan is beautiful! We love the pictures - isn't technology grand!
Now you really have your hands full!
Take care, big hugs,
Cynthia, Frank & Frankie DeMatteis
cynthia, frank & frankie dematteis <cynthia@frankiepants.com>
hamden, ct - Wednesday, October 5, 2005 11:53 AM CDT
Oh what at incredible blessing. Welcome to the world little Dylan. You're going to find out there are A LOT of family and friends who LOVE you, your Mom and Dad and sister Jessie. Love to baby, Marge
Marge Brown <brownpaige@knology.net>
Dunedin, FL USA - Wednesday, October 5, 2005 11:03 AM CDT
Is it just me or does Dylan look JUST like Jessie when she was born(except a bit smaller????) Seriously, around the eyes, nose and mouth, he really reminds me of her baby pics! What a cutie! I am so happy for all of you. Dylan we can't wait to meet you!
Love,
Auntie Sara and Uncle Dan
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Wednesday, October 5, 2005 11:03 AM CDT
God works in wonderous ways. So happy to hear all the good news. Best wishes to your growing family -in size and health!
Christine Micklitsch (NHCC) <dewduckin@aol.com>
Newton, MA USA - Wednesday, October 5, 2005 10:14 AM CDT
CONGRATULATIONS! A warm welcome to Dylan...what a happy day for the Aufman family! All the best...
Brent and Christine Midwood
Stow, MA USA - Wednesday, October 5, 2005 7:21 AM CDT
Congratulations to the entire Aufman family on both Dylan's birth and Jessie's progress! What a roller coaster you have ridden over the past six months. Let's hope the ride is over for now. Enjoy this time!
Lisa Flynn
- Wednesday, October 5, 2005 7:17 AM CDT
Congratulations on Dylan's birth and Jessica's progress and milestone!!
Love, Aunt Regina and Uncle Terry
Regina Flynn
Chicago, IL - Wednesday, October 5, 2005 6:12 AM CDT
yayayayay!!! Congrats Cari, Matt, Jessie and new baby Dylan!
Tori <toriwillard@mac.com>
Durham, NC - Tuesday, October 4, 2005 9:22 PM CDT
Cari, Matt, Jesse and baby Aufman, Happy 101st day! We will continue to keep our in our prayers!
Love Rebecca
Rebecca Shomo <shomor@fpsct.org>
Canton, CT - Monday, October 3, 2005 12:02 AM CDT
100!!!!!! Hooray! (though I think today is 101!!! Even beter.) Jessie, we are all so lucky to know you and be part of your life. Matt and Cari, you are amazing parents! You have weathered through all of this with amazing strength, courage, and grace. I am honored to know you, truly.
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Monday, October 3, 2005 7:00 AM CDT
Cari,Matt & Jessie- Happy 100 day. It is such a big milestone for the three of you. We are so thankful that you are our family and that you worked and sacrificed so hard to give Jessie this chance. We love you!!!
Nana & Gramdpa <aufmanjea@msn.com>
Bolton, CT - Sunday, October 2, 2005 8:46 PM CDT
Happy 100 day to all of you! Isn't it a great feeling! Eventhough there is still alot of stuff to continue to worry about, there is such a great feeling that you have made it to this major milestone! Hope Jessie's tests all go well and that you have great things to report.
Hugs and tons of prayers!
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
Asheville, NC - Sunday, October 2, 2005 4:55 PM CDT
HAPPY DAY 100!!!!!! good work jessie!! (and cari and matt of course!)
Tori <toriwillard@mac.com>
Durham, NC - Sunday, October 2, 2005 8:19 AM CDT
I am so happy to see that Jessie is doing so well. I will continue to remember you all in my prayers and will make special mention for Cari and her maternity "date." I know that Ron Jr. is very excited about the baby and coming to stay with you all. Love, Lorraine Weil
Lorraine M. Weil
Hamden , CT USA - Thursday, September 29, 2005 12:55 AM CDT
Matt and Cari,
Hope you guys are hanging in there. Good luck with the new baby and we send prayers for baby Jess. I will try and give you guys a call sometime soon. Things have been busy for me. Brooke and I hope to get together with you in a couple of years. Until then, know that we care and send our love and best wishes.
Neal and Brooke Alcalay <nalcalay@kumc.edu>
Kansas City, KS USA - Thursday, September 29, 2005 0:48 AM CDT
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, September 25, 2005 10:20 PM CDT
Cari, Matt and Jessica,
Just to let you know you are in our thoughts and prayers. We are looking forward to hearing about your new addition and grateful for the progress Jessica is making. Cari, I know this month is tough for you - keep the faith.
Love Aunt Mary, Uncle Jim, James & Patrick <mkschneski@yahoo.com>
Bennington, VT USA - Sunday, September 25, 2005 9:59 AM CDT
Hi, Jessie and Cari. Jessie - hope your rash, and discomfort, disappears. "Nana" is there for a few days, and her happy attitude should help. Love, Grandpa.
Jim Aufman <aufmanjea@msn.com>
Bolton, ct usa - Tuesday, September 20, 2005 2:48 PM CDT
jessie, i'm sorry to hear you're so itchy! but then again, maybe it's just a ploy to get your mom to rub your back - good work! i'm sorry i couldn't come see you today cause you were in clinic but your mom and i are gonna try hard to find a day this week for me to come play with you. have a good nite cutie
your best buddy, tori <toriwillard@mac.com>
durham, nc - Monday, September 19, 2005 9:28 PM CDT
Matt and Cari: I remember Jessie (and her family) in my prayers every day. Lorraine Weil
Lorraine M. Weil
Hamden, CT USA - Wednesday, September 14, 2005 1:27 PM CDT
Jessica and Cari
Boy did you look beautiful today in your matching Mom and daughter outfit! It was great to see you even in passing at clinic. Hope the rash is getting better!
Hugs,
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Tuesday, September 13, 2005 7:34 PM CDT
Hi Miss Jess,
I am back at work today, and I miss you already! I hope you are sleeping better (for mommy's sake, too!) and your tummy isn't as upset. I almost made Uncle Dan watch the Doodlebops this morning, but decided he wouldn't appreciate them as much as you and me! I miss you and love you very much!
Love,
Aunt Sara
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Friday, September 9, 2005 7:04 AM CDT
hay jessica my name is michael I am 7 years old. I hope you get better real soon because you are very pretty and I'm sure you are loved by everyone. I will write to you again soon. And remember to always try to keep smiling. Your friend Michael.
Michael <russellcaprio@sbcglobal.net>
North Haven, CT United States - Sunday, September 4, 2005 10:58 PM CDT
hay jessica my name is michael I am 7 years old. I hope you get better real soon because you are very pretty and I'm sure you are loved by everyone. I will write to you again soon. And remember to always try to keep smiling. Your friend Michael.
Michael <russellcaprio@sbcglobal.net>
North Haven, CT United States - Sunday, September 4, 2005 10:58 PM CDT
Hi, Jessie, Cari & Matt,
Sorry your weekend plans didn't work out as planned. Each morning I wake up with that fear of catching a cold. I'm sorry Matt had to go back to Boston. I hope all is well, despite the premature departure.
Big Hugs to Jessie! We're so glad she's doing so great! We're right behind you, it seems!
Take care,
Cynthia, Frank & Frankie
Cynthia, Frank & Frankie DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Saturday, September 3, 2005 6:52 PM CDT
Happy belated birthday Jessica. Best Wishes. I'm very touched to see such an outpouring of love by all of your friends and family!
Pat McMahon <pmcmahon@plusfunds.com>
- Friday, September 2, 2005 5:56 AM CDT
Happy Birthday Jessica!!! I promise next year will be better but you had to have this year to fill the rest of the years with hope. Enjoy your big day. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Tuesday, August 30, 2005 7:38 PM CDT
Jessie, I love you so. Happy Birthday! You look pretty without your hair. Our family loves you.
Dominick
Newton Highlands, MA USA - Monday, August 29, 2005 8:30 PM CDT
Belated Happy Birthday to Jessie! We heard from Pastor Ken about his visit last week! Hope you had a great birthday. You continue to be in our thoughts and prayers. The Hamiltons
Gretchen Hamilton <ghamilton@linbeck.com>
Jamaica Plain, MA USA - Monday, August 29, 2005 11:11 AM CDT
Happy Birthday, Miss Jess!! (a little late...) Looks like you had a happy birthday celebration-- hope you saved me some cake! I'll see you on Saturday! I can't wait for a Wiggles marathon!
Love, Auntie Sara
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Monday, August 29, 2005 7:07 AM CDT
HAPPY BIRTHDAY JESSIE!!! We've been following your progress and are glad things are going good. We love you very much!
Tara and Pat
Tara and Pat Klupa <tklupa@comcast.net>
Milford, MA USA - Sunday, August 28, 2005 8:55 AM CDT
HAPPY BIRTHDAY JESSIE!!!! have a great day today and i'll see you on tuesday!
your best buddy, Tori <toriwillard@mac.com>
durham, nc - Sunday, August 28, 2005 8:28 AM CDT
Okay, I know this will be early, but HAPPY BIRTHDAY, JESSIE! :) We got a glimpse of you this afternoon at clinic. I think Frankie and Jessie may have been fussing in unison. We, too, had a long day at clinic. But, as Dr. Paul says, we're about a week behind Jessie, and progressing as she is... thanks for being such a great role model!!! :)
Keep up the good work, Jessie!!
Big hugs,
Frankie, Cynthia & Frank
The DeMatteis Family <Cynthia@frankiepants.com>
Hamden, CT - Friday, August 26, 2005 9:53 PM CDT
We are happy to hear about Jessie's progress. Please let us know if we can do anything to help.
Lorraine & Ron Weil
- Thursday, August 25, 2005 12:20 AM CDT
Make Sure everyone wishes Jessie a Happy Birthday for Sunday. Her Uncle Rob and Aunt Heather wish her all the best and there is a package in the mail with some Birthday treats. Alamo, Aztec, and Astra wish they could be there on Sunday but they have some barking, scratching and tail wagging to do but they said they will be there in spirit.
Uncle Rob <robertdayshotel@hotmail.com>
Boston, MA - Thursday, August 25, 2005 12:02 AM CDT
Hi Matt and Cari, I was so moved to read about how you find it a privelege to be Jessie's parents and you know of no other so sweet, strong and in the moment. What you wrote about her and the love you all share moves me to tears. You are a truly beautiful, grace-filled family and reflect God's image as a threesome (soon to be foursome) in the most profound and true ways I could ever imagine. God's blessings to you. I miss you all. Thank you for sharing your journey with us and know that we of your church lift you in our prayers continually. Peace, Gretchen
Gretchen Elmendorf <ap@nhcc.net>
Newton Highlands, MA 02461 - Thursday, August 25, 2005 11:23 AM CDT
I've been following Jessie's progress and am so glad that she is doing so well. You all must have incredible strength and spirit and my thoughts and prayers have been and will continue to be with you.
Chrissie Watts Johnston <cbwatts9@aol.com>
Boston, MA USA - Friday, August 19, 2005 8:32 PM CDT
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, August 19, 2005 10:35 AM CDT
Hi there Cari, Matt and Jessie! We saw Jessie in clinic today. She seemed very happy and active! We didn't want to interrupt, but we're so glad things are going well for all of you! Frankie was in the isolet completely opposite you this morning.
Cari, if you need anything and Matt is back in Boston, please don't hesitate to contact me! I'll email you my contact information.
Take care, Cynthia DeMatteis, Frankie's mom
Cynthia DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Wednesday, August 17, 2005 11:09 AM CDT
Sounds like our girl is doing GREAT!!! Looking forward to my visit in September! Love, Sara
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Tuesday, August 16, 2005 2:13 PM CDT
Hi Cari and Matt and Jessica,
I wanted to let you know that all of you have been in our thoughts and prayers daily and especially at church. We miss you all.
Kitty Rieske <kitrieske@aol.com>
Newton, MA - Monday, August 15, 2005 10:37 AM CDT
Cari
I have a freezer full of food! I make Michael something and he eats a bite or two and then looks at me so sad. So I just freeze the meal for myself to be eaten later. I have learned to cook "big" when other family is around, that way it gets eaten. Michael kids me that I have become a TV dinner queen since that is what I buy for him - that way it is safe, not a lot of food and he can look at the choices and decide what he can handle eating right at that moment.
I am sure that if Jessie could tell you, she would be saying the same thing - I thought it would taste good, but YUCK!
hugs!
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Monday, August 15, 2005 9:57 AM CDT
Matt and Cari, I am so proud of the progress that Jessie has made. She is quite a brave little girl.
Evan Freiberg
Baldwin, NY - Thursday, August 11, 2005 1:31 PM CDT
Cari, Matt & Jessie - I am so happy that Jessie has been making such great progress! Love, Nicola
Nicola Lemay <nicola.lemay@wilmerhale.com>
- Thursday, August 11, 2005 11:44 AM CDT
We just want everyone to know that Jessie is as sweet a person as ever. We visited last week, and are proud to have her as a grand-daughter. Our prayers, as always, are with Jessie, Cari, and Matt. It's easier now, because we have visited her, and been welcomed by her in her post-transplant home. Love,
Jim and Eleanor (Grandpa and Nana) <aufmanjea@msn.com>
Bolton, ct usa - Wednesday, August 10, 2005 12:50 AM CDT
Hey guys --
I'm thrilled that Jessie's doing so well. Hang in there, and take it easy when you get the chance.
Matt Tait
Brooklyn, NY USA - Tuesday, August 9, 2005 11:48 AM CDT
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Monday, August 8, 2005 11:09 AM CDT
Matt, Cari & Jessie,
We're so happy that things are going so great for Jessie in clinic. And, a 30 minute visit yesterday??? WOW!
Just wanted to say congrats on her progress. Hope to see you guys soon in clinic.
Cynthia, Frank & Frankie... still on 5200...
cynthia dematteis <cynthia@frankiepants.com>
hamden, ct - Sunday, August 7, 2005 8:52 AM CDT
Wow! You have come so far. I'm so glad things are going well. It sounds like we might have Jessie ready just in time for the Christmas Pageant. We think about you often.
All our love, Kari, Mark, Bekah and Dominick Miller
- Thursday, August 4, 2005 11:04 AM CDT
HI Jessie, I am continuing to follow your caringbridge journel and I'm so happy that you are doing well. Keep up the good work!! You are so cute!! Love and prayers for continued progress!! Kathy Blackwelder and family
Kathy Blackwelder <jkmm@cetlink.net>
Rock Hill , SC - Wednesday, August 3, 2005 6:54 PM CDT
Hi again! I've been following Jessie's progress religiously and wanted to say how happy I was to see the pictures of her discharge.. it's so cute, how you can see in her eyes that she's smiling. You three are really a source of inspiration to me, and I so admire you. Good luck with everything!!
Kirsten O'Hara <kirstenohara@gmail.com>
Chapel Hill, NC - Monday, August 1, 2005 3:28 PM CDT
Hi, we got your web page address from Frankie's page. Our son Andrew has Hurlers and transplanted at Duke 4 years ago. I am glad to see how well Jessica is doing. I LOVE the pictures. That is surely a great day. We had confetti in our stroller for weeks!! Love,Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Monday, August 1, 2005 8:19 AM CDT
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, July 30, 2005 1:09 PM CDT
Isabel Jurado - www.helpisabel.com <isabel@helpisabel.com>
Rock Hill, SC USA - Friday, July 29, 2005 10:25 PM CDT
Congrats to you all! What a major milestone. Happy nesting in your new home and keep up the great work, Jessie!
Nicole Henning <nmhenning@verizon.net>
Winchester, MA USA - Friday, July 29, 2005 4:23 PM CDT
CONGRATULATIONS!!! We're so happy for all 3 of you - all the best for the first weekend in your new "home away from home"!
Brent and Christine Midwood
Stow, MA USA - Friday, July 29, 2005 7:40 AM CDT
Congratulations on a much needed HOME COMING!!!!!!! Jess, we are so proud of you. Matt and Cari, I want to grow up to be parents as wonderful as you both! I am so happy that Jessie is discharged and can begin getting back to her "old" self!!
Love,
Sara
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Friday, July 29, 2005 7:03 AM CDT
Dear Matt and Cari,
I have been praying regularly for you to have the strength to deal with the days as they creep by and you watch numbers and hope for the best. I just read your site today -- you are heros. Best regards, Ann and Bill
Ann Hulsing and Bill Koney
Newton Highlands, MA USA - Thursday, July 28, 2005 10:35 AM CDT
Good Luck with discharge today and the first night in the apartment!! I will try and come see you in clinic either Friday or Saturday. I also need to get your new phone number because you're no longer in your room!! Yay! :)
Tori <toriwillard@mac.com>
Durham, NC - Thursday, July 28, 2005 6:28 AM CDT
Dear Jessie
Yippee! Yippee! We will see you at clinic!
lots of love and healing prayers going your way
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Wednesday, July 27, 2005 9:45 PM CDT
Dear Jessie and family,
I am so happy that Jessie is doing great. I hated to hear that she was feeling bad yesterday. I know that God is continueing to answer your prayers. I know that God is going to be you all's big cheerleader though the whole thing with your daughter. Keep up the hard work. Matt you have to be strong for your wife and your daughter. Matt I know that you and your wife will get through this hard time with your daughter. I know that you guys don't know me. But I know that God is in your favor and that your daughter will fight to keep up the good work. Take care and God Bless. Jessie I just want you to know that I am proud of you and also keep up the good work that you are doing to get to go home today.
God Bless,
Catherine Porter
Catherine Porter <Catport18@yahoo.com>
Rock Hill, SC USA - Tuesday, July 26, 2005 9:03 PM CDT
So happy to see that Jessie is getting good results from the treatment. I hope she continues to feel better.
Her web page gets an amazing amount of hits. 4828 times so far - wow. Quite a fan club Jessie!
Take care all,
Kim
Kim Collins
Boston, MA USA - Tuesday, July 26, 2005 4:11 PM CDT
I have been following Jessie's progress for the past few weeks. I'm so happy she is responding so well to the transplant. Jessie is a precious little girl. You keep up the great work, Jessie. Grow cells grow!!! I am keeping you and all the other pre and post transplant children in my thoughts and prayers.
Andie <aproctor_2@hotmail.com>
SC USA - Sunday, July 24, 2005 4:43 PM CDT
I have been following your website and am so glad that things are going well for little Jesse. Please know Jesse is on my prayer list as well as all the children at Duke .
Kathy Blackwelder <jkmm@cetlink.net>
Rock Hill, SC - Saturday, July 23, 2005 1:07 PM CDT
Congrats on the donor cells!!!!
alyssa <sabiemc@aol.com>
orlando, fl usa - Friday, July 22, 2005 9:20 PM CDT
Fantastic news -- so glad to hear it!!! Thinking of you often.
Brent and Christine Midwood <admin@midwood.net>
Stow, MA USA - Friday, July 22, 2005 7:53 AM CDT
Hello,
Sounds like everything is going great, that is wonderful!
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, July 21, 2005 5:15 PM CDT
Just wanted to say hi! Hope things are doing well. If you see nurse Mandy...tell her Tommy's good friend Alyssa says hi! She is one of the coolest nurses up there and brought a smile to tom's face everyday! Grow Cells Grow!
alyssa (www.caringbridge.org/ca/bennettboys? <sabiemc@aol.com>
orlando, fl usa - Thursday, July 21, 2005 12:33 AM CDT
Hey Jessie,
I hope you have a good day today, grow cells grow!!!
Amy (one of your nurses) <gypsypedsnurse@msn.com>
Chapel Hill, NC - Thursday, July 21, 2005 5:21 AM CDT
Dear Jessica and family,
I just wanted you to know that I am praying for you and also your family. I know that God is going to do what is best for Jessica. You just have to stay strong and also be strong for one another. I know that it is like to go through everything with one another.
God Bless,
Catherine Porter
Catherine Porter <catport18@yahoo.com>
Rock Hill, SC USA - Wednesday, July 20, 2005 8:08 PM CDT
Dear Jessica,
I saw you walking (or should I say RUNNING!) in the hall with your Mommy trying her best to keep up with you. You are the fastest little walker out there.
I am so happy to see you out of your room everyday since that means you are feeling better!
Best,
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Tuesday, July 19, 2005 6:58 PM CDT
Hello!
I am happy to hear that everything is going well!
Alicia, John, Ciara, Hunter, and ^^Angel^^ Tommy Bennett Children's Journal <mps3mom@hotmail.com>
- Monday, July 18, 2005 3:45 PM CDT
Hey guys...this is the first time I have come to your site. I was up on 5200 with Tommy and Alicia while Tommy was undergoing his transplant. Kids like him and yours are truly heros...praying for you and yours
alyssa <sabiemc@aol.com>
orlando, fl usa - Sunday, July 17, 2005 8:11 PM CDT
Hi Guys Just to let you know I read your journal anxiously every night and also give Uncle Jim the update. We love you and you are always in our prayers.
Love Aunt Mary, Uncle Jim, James & Patrick <mkschneski@yahoo.com>
Bennington, VTG - Sunday, July 17, 2005 8:05 PM CDT
Hi Jessie and Mom and Dad: My thoughts are so often with you! Our prayers reach out on your behalf. Hope that apartment gels for Friday. We miss you! It's so nice to be able to visit this way! Love and oodles of wishes, Marianne
Marianne Talis <mariannetalis@AOL. Com>
Newton Highlands, Ma USA - Sunday, July 17, 2005 7:27 AM CDT
Matt, Cari, Jessie -
This is not where we expected to catch up with you after so many years but Mike Charkowski called and updated us on everyone from Rochester tonight. All our love and prayers are with you. Seems like you have one tough cookie of a little girl and she's beautiful too! We will be following your progress on the web and will be praying for you. Jessie - May your counts be up, fevers down and your discharge soon!
The Scotto's (Jamie, Sara, Kathy and Jacob) <scottofamily@comcast.net>
Simsbury, CT United States - Thursday, July 14, 2005 8:12 PM CDT
Hi Miss Jess,
I was thinking about you today (not much different from any OTHER day, but...). I just wanted to tell you how proud Uncle Dan and I are of you. We miss you lots! Grandma and Grandpa Swanson were here last week, and were asking for you. Love to you and Mommy and Daddy! Hang in there, everybody.
Love always, Auntie Sara
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Thursday, July 14, 2005 11:04 AM CDT
Hey guys, I'm really pleased to hear about all the progress. I'll keep my fingers crossed, too.
Matt Tait
Brooklyn, NY USA - Wednesday, July 13, 2005 10:16 AM CDT
Dear Jessie,Cari and Matt, Sounds like things are looking up.No hair but those eyes are bright and beautiful. You show them girl!!!!We are praying for you and think of you every day.Love Karen and barry
Barry Midwood <mbarry516@aol.com>
Dowingtown , Pa - Tuesday, July 12, 2005 8:29 PM CDT
Dear Jessie,Cari and Matt, You show them girl!!!Things are getting better. No Hair but those eyes are bright and beautiful.We are with you in spirit and send lots of kisses.Love Karen and Barry
Barry Midwood <mbarry516@aol.com>
Dowingtown , Pa USA - Tuesday, July 12, 2005 8:08 PM CDT
Dear Matt, Cari, Jessie,
What a great start of the week for all of you! Way to go Jessie!
with love,
Mary, (Michael's mom) www3.caringbridge.org/nc/mcendarferlehto/ <mary_mcendarfer@hotmail.com>
- Tuesday, July 12, 2005 6:48 PM CDT
These are wonderful pictures, thank you for sharing them. You are all in my prayers.
Eva Regan <eregan@welchs.com>
Westford, MA - Tuesday, July 12, 2005 6:19 AM CDT
Dear Matt, Cari, Jessie, I'm keeping you in my prayers, and I know God is surrounding you and keeping you in his love. Many good wishes, Anita Roberts
Anita Roberts <ararepoet@aol.com>
Newton, Ma - Saturday, July 9, 2005 2:13 PM CDT
Matt and Cari,
I miss seeing little Jessie. She is so strong and brave. I love you all and I am keeping you in my prayers. Keep up the endurance and know that better days are ahead.
Love you lots.......
Kim Murphy <kimmurphy77@prodigy.net>
Ocean Springs, MS USA - Saturday, July 9, 2005 7:26 AM CDT
Hi, Cari, Matt and Jessie! I'm so happy to read your web site to keep up with Jessie's progress. And, it was great to see her in the Kid's Space the other day. I know what you mean about Dr. Paul. Frank and I feel the same way. He has such an amazing attitude, and it just pours out of him.
Our thoughts and prayers are continually with you all!
Cynthia, Frank and Frankie
Cynthia DeMatteis <cynthia@frankiepants.com>
Hamden, CT USA - Friday, July 8, 2005 8:50 AM CDT
I'm glad Jessie is on the upswing. This past weekend sounds rough, but she's a trooper. Matt, everyone made it safe and sound back from Puerto Rico, but we all missed you. Thanks for the constant updates. It's good to know everyone is doing well.
Anna McMahan
Newton, MA - Thursday, July 7, 2005 8:11 PM CDT
Thanks for the frequent updates - sending lots of hugs and positive thoughts your way!
Brent and Christine Midwood
Stow, MA USA - Thursday, July 7, 2005 3:33 PM CDT
Guys,
Things it's sometimes awkward to say when making someone's coffee: I am so in awe of your strength through everything you and Jessie are going through. I am impressed with the character and will that it takes for the three of you to just get through a day, and especially, through it all, that you remain compassionate and friendly, wonderful people. I'm honored to have met you and will miss seeing you in the mornings. Thank you for allowing me to feel connected to such good people. You three are my heroes. I wish you all the best and continue to pray for Jessie. Good luck, and I will stay in touch.
Kirsten O'Hara <kirstenohara@gmail.com>
- Thursday, July 7, 2005 10:29 AM CDT
Hi everyone,
Sounds like a rough couple of days. I know that Jessie is in good hands down there, and I know she's excited to have BOTH mommy and daddy around for these few days! Sending her kisses and hugs and a puppy kiss from Ben--
Miss you all, can't wait to see you this fall!
Love, Sara
Sara Daley
Thorndale, PA USA - Thursday, July 7, 2005 7:16 AM CDT
Hi Jessie, Matt and Cari
The picture Matt is painting is a hopeful one, the graft seems to be taking. We pray Jessie is over the hump at last. Her picture speaks a thousand words. What an amazing job you all are doing.
Anton
Pittsford, N.Y 14534 - Wednesday, July 6, 2005 9:13 PM CDT
Hi Cari, Matt and Jessie,
I love your photos of Jessie - she looks so full of fun and giggles, even with all she is going through. I hope she is feeling better soon and you are seeing more great smiles!
You've done a great job with your online journal and it sounds like you've found the best care possible for Jessie. More proof of your great job as parents.
Hang in there - I will send you all my good thoughts and wishes!
Kim
Kim Collins
Sharon, MA USA - Wednesday, July 6, 2005 8:56 PM CDT
Matt and Cari-Just wanted to let you know that we are all thinking of you and praying for Jessie every day at EI. She is such a strong, brave girl.
Tanya Cairns <tanyac22@lycos.com>
Hopkinton, MA - Wednesday, July 6, 2005 8:42 PM CDT
Matt and Cari - I am very glad to hear that Jessie's white blood cell count was up. The strength you are all showing through this ordeal is amazing. Jeannot and I will keep sending our prayers to all of you... Love, Nicola
Nicola Lemay <nicola.lemay@wilmerhale.com>
- Wednesday, July 6, 2005 1:59 PM CDT
Matt, Cari, Jessie --
I'll pray that Jessie is turning this corner, and that she'll turn any others that come her way. Hang in there, guys.
Matt Tait <matt_tait@mac.com>
Brooklyn, NY USA - Wednesday, July 6, 2005 9:43 AM CDT
Hi Matt and Cari,
I'm pleased to hear the encouraging word this morning. Carina and Elena remember to pray for Jessie every night on thier own. Marisa sends her support- she missed having you on the Puerto Rico trip, Matt.
Liz Ramos
Newton, MA USA - Wednesday, July 6, 2005 7:44 AM CDT
Hi Cari, Matt and Jessie,
Just wanted to drop you a quick line to wish you a (belated) happy 4th! We're thinking of you and sending all our positive thoughts your way. Take care of yourselves and let us know if there is anything we can do for you up here in MA. Nicole, Matt and Tristan Henning
Nicole Henning <nmhenning@verizon.net>
Winchester, MA USA - Tuesday, July 5, 2005 7:16 PM CDT
No hair!!!!! Didn't even notice with those beautiful eyes. You guys are in our thoughts and prayers. Have a great weekend enjoying each others company.
Love Aunt Mary, Uncle Jim, James & Patrick <mkschneski@yahoo.com>
Bennington, VT - Saturday, July 2, 2005 9:51 AM CDT
She looks adorable! Of course :) And her fabulous smile keeps shining through. I'll call you all on Sunday. Welcome back Matt!
Tori <toriwillard@mac.com>
Durham, NC - Friday, July 1, 2005 7:05 PM CDT
Matt, Cari, and Jessie --
I just read the journal and know that this past month must've been very hard on all of you. I admire how you three celebrate the good days, and hang together on the tough ones. You're in my prayers --
Matt
Matt Tait <matt_tait@mac.com>
Brooklyn, NY 11205 - Thursday, June 30, 2005 11:36 AM CDT
Hi Cari, Matt, and Jessie,
Laura sent me the link to this. The hospital and care sound amazing! You're in our prayers.
Ji Seon Kim <ji_seon_kim@yahoo.com>
- Thursday, June 30, 2005 8:28 AM CDT
You all are in my prays. If we can do anything to help you through this time please don't hesitate to call. Love to all and give Jessie a hugh for me.
Ron Weil (Sr.) <weilr@easternct.edu>
- Wednesday, June 29, 2005 12:15 AM CDT
Dear Matt and Cari,
Ken has been giving updates at NHCC, and he reminded me to check the website as well. Thanks for helping us stay informed about Jessica. Cari, best wishes on your pregnancy! It sounds like the nurses and caretakers are providing amazing support for you all. I'm glad, because you deserve it! We are praying for you. Best regards, Sally
Sally Brickell <brickland6@rcn.com>
Newton, Ma US - Wednesday, June 29, 2005 9:00 AM CDT
Matt, Cari, Jessica,
We pray for all of you daily. Congratulations on the new baby!
Much love,
Anut Kathy and Uncle Ed
Kathy Barrett
Monroe, CT USA - Tuesday, June 28, 2005 11:08 AM CDT
Matt, Cari and Jess,
I'm reading this guestbook and I'm amazed. I hope you can feel that you are surrounded with love and prayers and hope. Thank god for those doctors and nurses who refuse to stop trying to find cures for these terrible illnesses! Keep the good news coming and congratulations on a new baby boy.
Niccole Udovich <nudovich@pprsr.org>
Naples, NY USA - Monday, June 27, 2005 5:08 PM CDT
All: I am glad to see the encouraging report. Ron and I continue to keep all of you in our thoughts and prayers. Lorraine Weil
Lorraine Weil <Lorraine_ Weil@ctb.uscourts.gov>
Hamden , CT USA - Monday, June 27, 2005 7:55 AM CDT
Dear Jessie, Cari and Matt
It is just wonderful that today was so good. Our thoughts and prayers are with you. Jessie is just amazing!!
Anton P. Porsteinsson
Pittsford, NY USA - Sunday, June 26, 2005 10:46 PM CDT
Cari, Matt and Jessie: We prayed for you in church today and we missed you all at the picnic. What fun we'll have at it next year when you'll be tossing water balloons along with the best of the gang. We are so glad that you are doing well. Our thoughts reach down your way!
Marianne Talis <Mariannetalis@aol.com>
Newton Highlands, Ma USA - Sunday, June 26, 2005 2:38 PM CDT
Jessie, Cari and Matt,
Just a quick late night note to say that our thoughts and prayers are with you all during this time. It was great to see Jessie out and about today. I caught a glimpse of her speeding by our door! And, I agree with Jessie, those brownies were GREAT! I had four!!! YIKES, it's a good thing they don't weigh us every day!
~Cynthia, Frank and Frankie
Cynthia DeMatteis <cynthia@frankiepants.com>
Hamden, CT - Saturday, June 25, 2005 9:44 PM CDT
What a good day the beginning to the start of a wonderful life for Jessie. Just to know guys you are in our thoughts and prayers. May God continue to bless you.
Love Aunt Mary, Uncle Jim, James & Patrick <mkschneski@yahoo.com>
Bennington, VT - Friday, June 24, 2005 8:49 PM CDT
Matt,Cari & Jessie,
You have been in our thoughts and prayers all day today. God is certainly good to give Jessie such wondergul parents!
Love,
Mom and Dad
Eleanor & Jim Aufman <aufmanjea@msn.com>
Bolton, CT - Friday, June 24, 2005 8:15 PM CDT
Matt, Cari and Jessie -
My thoughts and prayers are with all of you today. I hope everything goes well. All of us here at Welch's are praying for your beautiful family.
Lisa Flynn <lflynn@welchs.com>
- Friday, June 24, 2005 11:14 AM CDT
Hi Cari and Matt, We prayed for Jessie at weekday Mass today and you will remain in our prayers. god bless each of you!! Jeanne and some St. Jan's parishioners
Jeanne Schenk
- Friday, June 24, 2005 10:29 AM CDT
My thoughts and prayers are with you - good luck!
Laura Marhoefer <lmmarhoe@hotmail.com>
Cambridge, MA - Friday, June 24, 2005 10:20 AM CDT
I'm praying for all of you today. It's a great milestone to have reached, and I'm looking forward to celebrating many more. Matt, we'll miss you in Puerto Rico.
Anna
Boston, MA USA - Friday, June 24, 2005 10:07 AM CDT
Good luck tomorrow!
your best buddy, Tori <toriwillard@mac.com>
Durham, NC - Thursday, June 23, 2005 8:29 PM CDT
Dear Jessie,
I hope you feel better soon. It's too bad you will be inside all summer.
Love,
Bekah Miller <Rim371@comcast.net>
Newton, MA USA - Thursday, June 23, 2005 8:01 PM CDT
Dear Jessie,
I hope you feel better soon. It's too bad you will be inside all summer.
Love,
Bekah Miller <Rim371@comcast.net>
Newton, MA USA - Thursday, June 23, 2005 8:00 PM CDT
Dear Jessie,
You are cute and small and pretty.
Love,
Dominick Miller
Newton, MA USA - Thursday, June 23, 2005 7:51 PM CDT
Been following the web page, Good luck this week and our prayers are with you. Bob Klupa and Mary Hafey (father and m step-mom to Patrick Klupa, Tara's husband)
Robert Klupa <klufey@verizon.net>
Springfield, MA USA - Wednesday, June 22, 2005 1:00 PM CDT
Dear Cari, Matt and Jessie,
You are in our thoughts and our prayers.
Love Aunt Mary, Uncle Jim, James & Patrick <mkschneski@yahoo.com>
Bennington, VT - Tuesday, June 21, 2005 6:35 PM CDT
Dear Matt,
Happy Father's Day to one of the best Dad's we know!!!
Love,
Sara Daley and Karen Midwood
Sara Daley <npsara@hotmail.com>
Thorndale, PA - Sunday, June 19, 2005 2:53 PM CDT
Matt and Cari,
I'm glad to hear that Jessie is still her happy and energetic self. The photo album made me laugh, I can see her studying the pictures. Does she have her Red Sox Media Guide with her as well? Thinking of you all.
Laura Marhoefer <lmmarhoe@hotmail.com>
Cambrdige, MA 02140 - Friday, June 17, 2005 9:09 AM CDT
Dear Matt, Cari & Jessie,
Glad to hear all is going well. Just to let you know you all are in our thoughts and prayers. God Bless You.
Love Aunt Mary, Uncle Jim, James & Patrick <mkschneski@yahoo.com>
Bennington, VT - Thursday, June 16, 2005 6:55 AM CDT
Dear Matt, Cari and Jess
Our best wishes from Rochester. I'm glad to hear that things are moving and it sounds like things are going well so far. Wonderful news about the baby boy. Take care of yourselves and conserve energy. Our thoughts and prayers are with you.
Anton, Sigga, Greta and Orri
Anton P. Porsteinsson <antonpjp@aol.com>
Pittsford, NY USA - Wednesday, June 15, 2005 10:06 PM CDT
Cari, Matt and Jessie, We're so excited to hear the good news about the little man! We're thinking of you all and are marvled by Jessie's courage (and MOMs). I'll contact Robbie about your housing situation...see if we can help. Durham is hot! Hang in there. We love you guys.
chris Abraham <cabraham@rochester.rr.com>
- Tuesday, June 14, 2005 10:02 PM CDT
What wonderful news, a baby brother, just like Faith !! I thank God he is well and pray for a healthy happy pregnancy and a healthy son for you too. Faith is enjoying being a Big Sister as I know Jessie will. Please know that Jessie is being prayed for daily by many, many people and know that the strength of all these prayers will see you all through. You are in my thoughts.
Agnes Wladyka <Wladyka@aol.com>
Mountainside, NJ - Monday, June 13, 2005 7:58 AM CDT
Glad to hear that things are going OK and that a healthy baby boy is coming this fall.
jennifer siedman <j.siedman@verizon.net>
wellesley, ma - Friday, June 10, 2005 6:54 PM CDT
Matt and Cari- Jessie is in my thoughts and prays as she begins her treatment. May all go well.
Evan Freiberg
Baldwin, NY - Friday, June 10, 2005 8:46 AM CDT
Hi Matt,Cari & Jessie,
Congratulations on your exciting news. I know that Jessie will be an amazing big sister! I'm glad that everything is going well at Duke...I hope you filled a suitcase with Little People! I'm thinking of you.
Alyssa Gusenoff <alyssadubs@hotmail.com>
Boston, MA - Thursday, June 9, 2005 4:30 PM CDT
Matt, Carrie & Jessica, I work with Mary King and have been keeping posted on your family's progress. Jessica is a beautiful child, she looks just like her mom. Our prayers are with her and you all. God will see you through this time.
Mary Lou Albert <looulou@together.net>
Bennington, VT USA - Thursday, June 9, 2005 9:36 AM CDT
Matt, Cari and Jess
I know you probably have heard this a few times; but, you are both wonderful parents. All four of you are in our thoughts and prayers. If there is anything else we can do, let us know.
Brandon and Liz
Brandon and Elizabeth Bilodeau <bbilodeau1@comcast.net>
Middle Haddam, CT USA - Wednesday, June 8, 2005 4:59 PM CDT
Matt and Cari,
You are the most amazing parents. Be well and know that we are here for you always.
Love,
your cousins
Nora Flynn <nkflynn@yahoo.com>
Chicago, IL USA - Wednesday, June 8, 2005 2:05 PM CDT
Matt, Cari and Jessica,
We think of you often and include all of you in our prayers.
Love, Aunt Regina and Uncle Terry
Regina Flynn
Chicago, IL - Wednesday, June 8, 2005 3:21 AM CDT
Hi
What wonderful news!!!!!! A baby brother for Jessie. We are very happy for you. Cari, Matt, Jessie and baby to you are all in our thoughts and prayers as you start your journey to help Jessie get better. As someone has mentioned in their e-mails and I know you both are great parents.
Love Aunt Mary and Family <mkschneski@yahoo.com>
Bennington, VT 05201 - Tuesday, June 7, 2005 8:20 PM CDT
Hi Matt and Cari. Just reading your last entry reminded me yet again of how brave you are and how brave Jessie is. You are the most remarkable parents ever. You all go to the ends of the earth for each other and that is no small wonder, no small miracle. I pray that you find people to support you down there in all the ways you need. God always finds a way to embrace us through the people God puts in our lives, especially at our time of greatest need. God bless you all and please tell Jessie I think she is beautiful and full of the most wonderful spirit. Blessings, Gretchen
Gretchen Elmendorf <ap@nhcc.net>
Newton Highlands Congregational Church, MA - Tuesday, June 7, 2005 7:21 PM CDT
Thanks for the frequent updates - our thoughts and prayers are with all three (four!) of you.
Brent and Christine Midwood
Stow, Ma USA - Tuesday, June 7, 2005 12:14 AM CDT
Matt and Cari,
Far and away our hearts and minds are with you and baby Jess. G-d bless all of you. We pray for G-d's grace. You guys are so special.
Neal and Brooke Alcalay <nalcalay@kumc.edu>
Kansas City, KS USA - Monday, June 6, 2005 10:52 PM CDT
We just want you to know that the St. Luke Catholic Parish in Beavercreek,Ohio have all of you in our prayers. You do not know us but we have been told of Jessie's needs by Rosemary (our daughter) and David Flynn.
Alice and Paul Pleva
Beavercreek, OH USA - Monday, June 6, 2005 1:39 PM CDT
Matt, Cari, and Jessie,
You are all in our thoughts and prayers. Please let us know if there is anything we can do to help.
Love, Tara and Pat
Tara Klupa <taram1@prodigy.net>
Newton, MA - Sunday, June 5, 2005 9:22 PM CDT
Dear family,
Rob and I are thinking of you and hoping you doing OK. We are taking good care of the stinks and they seem to be content...unless, of course, someone walks by the house - then they are a bit riled up. Anyway, we miss you and wanted to send our love.
Heather & Rob
Robert & Heather <robertdayshotel@hotmail.com>
- Saturday, June 4, 2005 4:41 PM CDT
Dear Cari, Matt & Jessie
Just to let you know we think of you guys often. I gave Aunt Kathy the address also. So glad that you have this website. Enjoy the weekend and God Bless You.
Love Aunt Mary, Uncle Jim, James & Patrick <mkschneski@yahoo.com>
Bennington, VT USA - Friday, June 3, 2005 8:52 PM CDT
Dear Jessie, I never met you but I know your Mommy and Daddy and that they love you very much. All of my friends and I are praying that the doctors will make you better real soon so you and Mommy can go back home to be with Daddy. Love and lots of hugs and kisses, Agnes
Agnes Wladyka <Wladyka@aol.com>
Mountainside, NJ USA - Thursday, June 2, 2005 9:46 PM CDT
I am a member of the B.Braun Christian Fellowship and just opened the update of Jessie's struggle. What a great picture of her on this website. I can feel the love you share with her, shining through her expression of joy. Please be comforted, knowing that there are others praying for Jessie, her doctors, and your family. I am happy to hear that you will be with her through her hospital stay at Duke. I know she is getting the best therapy possible there and I will pray for the success of this risky procedure. It is clear that you and your family are making the best choices for her. Keep smiling. Peace be with you.
Bonnie Macher <bonnie.macher@bbraun.com>
Bethlehem, PA USA - Thursday, June 2, 2005 9:43 AM CDT
Hi Cari! Bill showed me how to get to the guest oob. I remember Jessie, Bill an you in daily Mass. You take care of Jessie and we will do th praying!! Love, JEanne Schenk
Jeanne Schenk <JMOS29@aol.com>
Naples, NY USA - Wednesday, June 1, 2005 12:21 AM CDT
Dear Matt, Cari, and Jessie,
I wish you three the best in the coming weeks of Jessie's treatment. Jessie is a very special girl and she is lucky to have such loving, dedicated parents. I hope that NHCC can be a source of strength and hope for you three!
love,
Megan
Megan Fletcher <mmf35@georgetown.edu>
Washington, DC USA - Sunday, May 29, 2005 5:21 PM CDT
Dear Jessica, You don't know us but we are friends of Tony, Dawn & Agnes. I saw the pictures of you on this website. Not only are you beautiful but you also look very strong and brave. Mommy and Daddy are putting you in the best of hands at Duke and with all of these people praying for you, you are sure to come through this with flying colors! Our thoughts and prayers are with you, mommy & daddy. With love, Stephen, Robyn, Brian, Bailey & Reese xo
Robyn Fisher <rcfisher@optonline.net >
Cedar Grove , NJ USA - Friday, May 27, 2005 2:29 PM CDT
Matt, Cari & Jessie,
We hope that everything goes well for Jessie down at Duke. Hopefully the doctors there can help Jessie. Our thoughts and prayers are with the 3 of you.
David & Debbie Morris <dmorris12@hotmail.com>
Canton, MA USA - Friday, May 27, 2005 7:26 AM CDT
Dear Matt and Cari,
Our thoughts and prayers are with you as you start your journey. Jessie certainly is a beautiful little girl with a wonderful smile. It is a wonderful idea to have this website for people who love you could be kept up-to-date and for support for your family. Hugs & Kisses
Mary S. King <mkschneski@yahoo.co,>
Bennington, VT USA - Friday, May 27, 2005 6:44 AM CDT
Matt, Cari, and Jessie,
Our prayers, thoughts and love are with you. We aren't always the most eloquent people in the world, but you know we are here. Please take care, and keep up the faith and hope.
Dad and Mom <aufmanjea@msn.com>
Bolton, CT USA - Friday, May 27, 2005 6:35 AM CDT
Matt & Cari - as a father, my prayers go to Jessie and you over the next several months. Know your extended network of friends and family are there for you at any time.
Phil Hanaka
Phil Hanaka <pmhanaka@gmail.com>
Fort Lauderdale, FL - Thursday, May 26, 2005 5:11 PM CDT
Cari, Matt and Jessie:
Hope she is doing well at Duke and that you guys are hanging in there. I hope she is allowed shoes at the hospital. Call if you need anything from us back at EI.
Brandon Westfield <shubones10@yahoo.com>
Natick, MA - Thursday, May 26, 2005 2:09 PM CDT
Jessie is blessed to have such loving and caring parents. That and the love and prayers of all your friends and family are going to help her through this. Our thoughts and prayers are with you all.
Mike and Heather Charkowski <mchark@comcast.net>
Epping, NH - Wednesday, May 25, 2005 12:45 AM CDT
Dear Cari, Matt & beloved Jessie -- prayers and love are flowing in, around, about you all as you embark on this journey. This website is a gift to us all who love you. Thank you for sharing Jessie's ongoing story on this website. We will all continue to pray without ceasing. Love, big warm hugs, Marge
Marge Brown <brownpaige@comcast.net>
Dunedin, FL USA - Wednesday, May 25, 2005 7:28 AM CDT
Matt, Cari & Jessica,
My thoughts and prayers are with all of you. Like my parents, call if you have any needs.
Rich Murphy
- Tuesday, May 24, 2005 4:15 PM CDT
Dear Jessie, You don't know me but I know a lot about you through your uncle Barry, here in PA. You are a beautiful and strong little girl. My thoughts and prayers are and will always be with you and your mommy and daddy. I look forward to hearing all about your progress to good health! Hang in there little Jessie!
Liliana and Mark Rizzo <lrizzo@cpcusociety.org>
Exton, PA 19341 - Tuesday, May 24, 2005 12:44 AM CDT
Matt, Cari and Jessie,
We are excited for your hope, and we are praying that her transplant goes smoothly. We will be back at Duke in August. We hope to meet you then.
Please know we are here for you!!
Love, The Nicoll's
Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net>
Colorado Springs, CO USA - Tuesday, May 24, 2005 9:53 AM CDT
We are praying for Jessie, your entire family and the talented doctors and medical community that will be helping her. Please remember that we are here and can help with the most sundry of tasks that still need to get done. We're close by and want to help in any way we can. God bless. Eric, Sabrina, Isabella, and Michael
Sabrina Libby <slibby@welchs.com>
Westford, MA Middlesex - Tuesday, May 24, 2005 7:46 AM CDT
Dear Matt,Carrie and Jessie, So many people are pulling for All of you.You are all in our thoughts and a lot of people who don't even know you are thinking and praying for You. Look what this little girl has done in such a short time. Peace to each of you and it's only a phone call away.love Karen and Barry
Karen midwood <mbarry516@aol.com>
Dowingtown, Pa 19335 - Monday, May 23, 2005 8:43 PM CDT
We are friends of Agnes and Michael who passed along the e-mail about Jessie. We do not know your family, but as parents and soon-to-be grandparents, we are very sorry to hear about Jessie's illness. We will keep her and her family in our prayers. Such a cute little girl!
Bonnie and Ron Grenier <bonniegrenier@verizon.net>
Marblehead, MA USA - Monday, May 23, 2005 5:52 PM CDT
Matt, Cari and Jessica,
The three of you will be in our thoughts and prayers. We look forward to seeing all of you once you return to Massachusetts. Let us know if we can be of help with anything now or down the road.
All our love,
Mary & Sapati
Mary Weil Tufaga <mwtufaga@dbh.com>
Wethersfield, CT USA - Monday, May 23, 2005 2:01 PM CDT
Hi Matt and Cari, how very loving of you to create this website for all of us who care so much about you and Jessie. I love the picture of Jessie. Hope springs eternal from her face. The picture captures her sense of play and her radiance. She is such a strong girl who I admire tremendously for the perseverance she's shown already in this world. May we all have such strength of spirit she has blessed us with. Know that people in our church love you both and Jessie and we are lifting you up in our prayers and carrying you in our hearts wherever we go. God bless you, Gretchen
Gretchen Elmendorf <glelmendorf@aol.com>
Newton, MA - Monday, May 23, 2005 11:55 AM CDT
Cari, Matt and Jessie,
You’re in our thoughts and prayers. I know it has been some time since we’ve seen each other but never hesitate to ask if you need anything. We will be thinking of you in NC. Thank you for the website.
Love,
Rebecca and Matt
Rebecca and Matthew Shomo <matthew.j.shomo@towersquare.com>
Middletown, CT 06457 - Monday, May 23, 2005 11:37 AM CDT
Matt, Cari and Jessie -
Good luck with the procedure. My thoughts and prayers are with you all.
Lisa Flynn
- Monday, May 23, 2005 10:53 AM CDT
cari, matt & jessie - you're in my thoughts as always! please take my love along with you on your journey ahead! (when you get back jessie, i'm comin out to watch the wiggles with you again!)
Marnie Smith <MarnieS44@hotmail.com>
Steamboat Springs, CO - Monday, May 23, 2005 10:08 AM CDT
Cari, Matt and Jessie,
You are in my thoughts and prayers. Good luck - I'll miss you all while you're away.
Laura Marhoefer <lmmarhoe@hotmail.com>
Cambridge, MA USA - Monday, May 23, 2005 8:50 AM CDT
Cari and Matt-my heart goes out to you. We are praying for Jess and for both of you, as well. If there is anything we can do, please let us know.
Niccole Udovich <nudovich@pprsr.org>
Naples, NY USA - Monday, May 23, 2005 7:26 AM CDT
As always, I am thinking of you guys. Jessie, we love you so much and you are always in our prayers. We are so lucky to have such a wonderful little girl in our lives.
Love love love,
Auntie Sara and Uncle Dan
Sara and Dan Daley
Thorndale, PA - Monday, May 23, 2005 7:13 AM CDT
Cari, Matt, and Jessie,
Our prayers are with you.
Sean, Kim, and William Murphy <SEAN_MURPHY@prodigy.net>
Ocean Springs, MS USA - Sunday, May 22, 2005 5:40 PM CDT
You guys will continue to be in my thoughts and prayers. Thank you for the website.
Ron Weil Jr <ronweil@aol.com>
Overland Park, KS 66210 - Sunday, May 22, 2005 3:54 PM CDT
Cari, Matt & Jessie...You are in our hearts and our prayers. Please call for any need. Love to all
Aunt Noreen & Uncle Danny
Dan & Noreen Murphy <W1DMM @ ARRL.NET>
Durham, CT USA - Sunday, May 22, 2005 2:30 PM CDT
Cari, Matt, & Jessie,
You are in my thoughts and all of us at EI miss Jessie very much. My Pooh house isn't as loved as it used to be.
Tanya Cairns <tanyac22@lycos.com>
Framingham, ma - Sunday, May 22, 2005 12:35 AM CDT
Cari, Matt & Jessie,
You continue to be in our thoughts and prayers. Please remember that we are just a phone call or or email away and, would love to help in any way that we can. Jessie's website is great. Thanks for keeping us connected in this way.
Love, Ingrid, Hannah & Bill
Ingrid Larson <ingridlarson@comcast.net>
Newton, MA USA - Saturday, May 21, 2005 7:26 PM CDT
We are thinking of you guys and you are in our prayers. Uncle Jim says hi (he said he isn't much for words). If you need anything please let us know. By the way Happy Anniversary to you and keep the faith. Love Ya Jessie
Uncle Jim, Aunt Mary, James and Patrick <mkschneski@yahoo.com>
Bennington, VT - Saturday, May 21, 2005 5:59 PM CDT
Cari, Matt and Jessie,
We're thinking good thoughts for you all, and are hoping for the best.
Chris Abraham
naples, ny - Saturday, May 21, 2005 5:25 PM CDT
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