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I think of all of you so often. You have given me such a special gift just by being my friends. You are always in my prayers most especislly September 16. Heather is so beautiful just like her family. You are all wrapped in the hands of G_d.
Cheryl Fradenburgh <cjafrad@aol.com>
Webster, NY United States - Saturday, September 19, 2009 8:38 AM CDT
Thinking of you all today on Heather's anniversary.
Love~ Kerry, Hailey & Brenna
plymouth, ma - Wednesday, September 16, 2009 9:38 AM CDT
Hi you two. . .
Thinking of you. . .
Sh
- Thursday, July 9, 2009 0:57 AM CDT
Hi Paul and Heidi,
I was thinking that you would win the Extreme Home Makeover but then I wondered, since there is so much drama associated with the show, if they'd pick a place with a bigger lot and more room to build a big house and get that big bus on the street, etc. I think since there's so much "show" about the whole thing that they just took that place in CT with the acre lot where they could put such a big house, etc. Who knows. You should have won! I'm glad you are still getting your house renovated so that it will work for you a lot better.
I hope the kids are having a good summer. Maybe we'll get some summer weather before it is over.
Dawn <dawnand3dogs@charter.net>
- Saturday, July 4, 2009 10:54 AM CDT
I was so disappointed when I learned you didn't win Extreme Makeover-Home Edition. I even drove by your house on Sunday morning, just to make sure. How were you notified you didn't win?
Sarah Kelleher-Mochak
Florence, - Saturday, June 27, 2009 4:45 PM CDT
hello out there....you know how you give me a hard time when I went long between updates, so I am returning the favor! LOL.....I miss you guys and when the weather gets better we need to get together so the kids can play and we can visit....miss you all
Donna Thorell <Iluvdizney2@comcast.net>
- Friday, February 13, 2009 8:34 PM CST
You should put Nick's paragraph on this page! Celiac is such an unknown disease, but very common. Most just don't know they have it. My 9 year old daughter was diagnosed last spring with it. It's been tough. I started following your family years ago and check in from time to time. I am amazed by your positive attitudes and know good things will come to your nice family. Take Care you are in our thoughts and prayers!
Jill M.
- Monday, January 26, 2009 3:02 PM CST
Hi Paul and Heidi,
We had a little Umass get together yesterday at Jillian's house and we were all asking Brett about you guys, so I searched the internet and found your caringbridge page. I am so sorry to hear of all the challenges your family has had. I haven't seen either of you since I ran into Heidi at Baystate hospital a few years back when my son was there for his leukemia treatment. He had a stem cell transplant almost 4 years ago now and is doing really well. You are a very strong family and I really admire you both!
Deb Rossmeisl (Blanchard) www.caringbridge.org/ma/adam <djrossmeisl@yahoo.com>
West Springfield, MA - Monday, December 29, 2008 6:36 PM CST
Meagan and Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Wednesday, December 24, 2008 1:21 PM CST
Wishing you a MERRY CHRISTMAS and a very happy new year!
Love Alex and family
MaryBeth <attnymb@aol.com>
- Sunday, December 21, 2008 2:20 PM CST
Hi Heidi and Paul,
So sorry about the PCA. I had PCA's for a while and could very rarely find any good ones. Many of them have that kind of attitude and it can get really frustrating!
I hope you all have a wonderful holiday season and can enjoy it! Give Mercury a hug for me. Sounds like he is a wonderful companion for Heidi!
Malisa <malisam@comcast.net www.caringbridge.org/pa/malisa>
- Monday, December 8, 2008 1:06 AM CST
Hi Heidi and Paul,
How was Mercury's first Thanksgiving?? I hope you are all well!
Dawn <dawnand3dogs@charter.net>
- Friday, November 28, 2008 10:55 AM CST
HAPPY THANKSGIVING
Meagan and Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Thursday, November 27, 2008 2:37 PM CST
It's the time of year when we're reminded to give thanks.
Instead of waiting until next year to be reminded,
Let's make every day one of thanksgiving;
After all, each day is a unique gift.
So, give a hug for no reason;
Say I love you, just because;
Share a smile with a stranger;
Take the time to count your blessings;
Don't take anything or anyone for granted;
And end each day with no regrets.
Thank you, my friends and family,
For sharing, caring, laughing and crying with me.
I'm truly blessed to have each and every one of you in my life
And I am thankful you have allowed me
To be a part of yours.
May you and yours have a safe and memorable Thanksgiving.
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Thursday, November 27, 2008 8:22 AM CST
Heidi and Paul...I want you to know I love you and miss you a lot.
Great job on the grants and the fundraising. Heidi I think you should get paid as a consultant researching that stuff for other people! You have a great resume right there in your home. It is just a thought!
take care and like I said, I love you a lot and miss you both tons.
Donna Thorell <Iluvdizney2@comcast.net>
- Wednesday, November 5, 2008 10:21 PM CST
Thinking about you guys today Remembering Heather and wanted to just drop in and say hello.
Ann K <akurtz1974@msn.com>
Brighton, Co 80602 - Thursday, September 18, 2008 2:15 PM CDT
Hi Heidi,
Hope things are still going well with Mercury! I would love to hear more about your new addition! :)
Also, thinking of you and your family this week during the third anniversary of Heather's passing away. She has not been forgotten......
With love,
Malisa <malisam@comcast.net www.caringbridge.org/pa/malisa>
- Monday, September 15, 2008 2:26 AM CDT
I hope things are working out well with Mercury. You must be finished with boot camp by now! And back to school for the kids! Enjoy.
Dawn <dawnand3dogs@charter.net>
- Monday, September 1, 2008 3:15 PM CDT
Hi Heidi,
I know service dog boot camp is quickly approaching. Do you have everything you need? Let me know. Praying your four footed helpmate is as beneficial as ours have been.
Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Thursday, July 31, 2008 12:03 AM CDT
Sh (www.caringbridge.org/in/oliviablinndekold)
Praying for you., - Thursday, July 24, 2008 10:16 PM CDT
Hi Heidi and Paul,
Just checking in to see how you are all doing. I hope you enjoy the rest of the summer.
Heidi
Simoes Family <Lexicam24@cox.net>
Johnston, RI USA - Friday, July 18, 2008 2:20 PM CDT
I'd LOVE to see recent pics. . .praying for all ahead of you!
Sheila (www.caringbridge.org/in/oliviablinndekold)
- Saturday, July 12, 2008 12:05 AM CDT
I hope you guys have a great summer.I'm sure nick will have a great time at camp.I feel your pain with the septic,we have to do it two.They are on our street now,what a mess.The kids will love the big trucks.Have a good summer
Melanie,Tom,Lilly,Jordan&Maggie <trmr01@charter.net>
easthampton, ma United States - Tuesday, June 24, 2008 7:16 AM CDT
Hi Heidi...and Hi Paul,
Congratulations on your 13th Wedding Anniversary!! True love and friendship lasts forever!! You and your family has been through so much in the past few years but anyone who knows you knows that your love for each other and your children have pulled you through the most difficult of times. Glad to hear that things are better and that Nick is finally growing!! And I am so glad to hear that Katie is doing so well in the music department. I hope she continues to practice and gets better with time. I miss you guys so much. Things here have been crazy and I wonder at times if it will ever get better. I have lost a ton of weight, and I am depressed and upset that I have to deal with this disease for the rest of my life. At timees I am just plain sick and tired of hooking up my TPN and taking my meds. I just want to be normal again...is that even possible?? hehehe Thinking of you often and I always keep you and your family in my prayers. I hope that when I come up to Boston for one of my appts. that we can get together for dinner or just coffee and desert. I love sweets too!! Please take care and know that even though I don't always email or leave a message in your guestbook that doesn't mean that I don't think about you or pray for you.
Love and hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, June 10, 2008 10:35 PM CDT
Hi Heidi... hi Paul! I've been checking in on CB sites today (rather than reading emails that have clogged my inbox) and your's is my last. I can't tell you how happy I am to see how well things are going. I know there are good and bad days and probably even hours, but the love and commitment and bond you have has brought you through some of the toughest times anyone could experience. And you have both done it with grace and dignity. I'm blessed to know you and to call you a friend. I hope and pray that everything continues on this "positive" path...who knows where it will lead!
Love and Hugs and as always Prayer
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, June 7, 2008 12:03 AM CDT
Heidi, It was great to talk to you today. I hope things are going okay for you.
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Thursday, May 8, 2008 10:09 PM CDT
Hope all is well! Colby loves seeing Nick, when he visits WBMS. Love The Ouellettes
Jacquie <jcjck@verizon.net>
- Monday, April 21, 2008 5:56 AM CDT
Paul and Heidi
Glad to hear your all doing well. Sounds like 2008 might be a good year. I am sure you had alot of snow this winter. The Cape got a few inches but not much. Wish I had more time to type but Andy only gives me a few minutes. Just wanted to say hi and that I think of all of you often. Thoughts and prayers for all of you. XOXO
Erin MacLean <charlieerinwill2@msn.com>
sandwich, ma usa - Tuesday, April 8, 2008 2:11 PM CDT
Alex is stopping by to wish you a happy spring!
Love Alex and MaryBeth
MaryBeth <attnymb@aol.com>
- Thursday, April 3, 2008 7:05 AM CDT
Coleman Family,
You are all so strong through everthing you have been through. I thank you for sharing your story and for the new updates on your family. I am praying for of you. Tonight I was thinking about Heather and thought I would stop in for a quick "HELLO"!
Wow that story about your work is an AHHHHH moment. You were put in the right place at a very right time. I don't know how long stuff like that can be undone but I am guessing not very long.
God Bless
Ann "Angel Eli's mommy" <akurtz1974@msn.com>
Brighton, CO USA - Tuesday, March 25, 2008 11:09 PM CDT
Hi Heidi, I hope you get better soon. All of us at REACH really miss you!
Faith E. Rockwood <frockwood@servicenetinc.org>
Greenfield, MA 01301 - Tuesday, March 11, 2008 2:40 PM CDT
I've been following your CB page for years, yet seldom leave a message, just pray for your specific concerns. We have three service dogs in our home. They have multiple roles but alerting is one of them. There is no way to describe the positive changes they have had in our lives and homes. If any of you have questions as you proceed down this path in your journey, please feel free to ask.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Monday, March 10, 2008 11:12 AM CDT
IF I read correctly, February 8 was Miss K's birthday!? That is also my brother's.
I sure hope she had a great day.
SO thankful to hear you have some help. Good stuff!
Wonderful news to hear how well Heidi has rebounded. Is there a chance to get Zel for compassionate use?
Is there something O's doc could send to Heidi's? Let me know.
Know we care!
Sh
Floyds Knobs, IN USA - Sunday, February 17, 2008 7:09 AM CST
Heavens you have all been busy! I'm glad Nick has the PCA, that sounds like it is working very well.
Dawn <dawnand3dogs@charter.net>
- Friday, February 8, 2008 8:21 AM CST
I'M SO GLAD THIS ARE GOING GOOD FOR 2008.KEEP UP THE GOOD WORK HEIDI.WE THINK OF YOU GUYS ALL THE TIME.
GET READY FOR ALL OF THE SNOW!!!!!!!MY KIDS ARE HOPING FOR A SNOW DAY!!
MELANIE,TOM,LILLY,JORDAN&MAGGIE RUBECK <trmr01@charter.net>
EASTHAMPTON, MA - Sunday, January 13, 2008 8:38 AM CST
Wishing you many blessings and a very happy new year!
Love Alex and family
MaryBeth <attnymb@aol.com>
- Tuesday, January 1, 2008 2:08 PM CST
May God Be with and Bless You This Christmas
Remembering you at Christmas
With a prayer that God above
Will bless you with His precious gifts
Of faith and hope and love,
Faith to make your life serene,
Hope to keep it bright,
And most of all, God's holy love
To be your guiding light.
Merry Christmas
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Monday, December 24, 2007 1:25 PM CST
Hi Heidi,
What a Christmas miracle you are!!! You are such an inspiration to me and I am sure to so many others too.
Anyway, so so glad you are home this holiday season and are are feeling so much better than expected. Dave and I are thinking of your whole family and keeping you in our prayers.
With love,
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa >
- Sunday, December 23, 2007 6:03 PM CST
SOOOOO thankful!
PRAISE GOD!
Sheila (www.caringbridge.org/in/oliviablinndekold)
Floyds Knobs, IN U*S*A! - Wednesday, December 19, 2007 10:05 PM CST
OMG... What an AWESOME Christmas Gift for everyone!!! YEAH!!! Heidi is HOME, and will hopefully stay put there for a while now...!!!
I did however just get my act together and send something to the Rehab Hosp. I know they probably won't forward it, so I will try and get my act back together and send it out again!
Heidi... I am SOOOO happy that you have made so much progress and are doing so well. I was beginning to think that not many of us were capable of "pro-gress" anymore... Keep it up maybe it is contagious and I can catch it. LOL!
Love and Hugs and Christmas Blessings,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, December 16, 2007 4:08 PM CST
I'm so glad to read that Heidi is home. What a wonderful early Christmas gift! Enjoy the season.
Sarah Kelleher-Mochak <sarkellmo@comcast.net>
Florence, MA - Saturday, December 15, 2007 10:29 AM CST
Dear Paul and Heidi,
I have not met you, but I am in tears of joy at the wonderful news of Heidi's homecoming. I am a friend of Donna Thorell's (we are another mito family), and I have been asking the Lord, along with everyone else, to bring Heidi home for Christmas. Praise Him!! I am so happy for you, and I know it will be a beautiful time for your family. I will continue to pray for all the details to work out and to thank God for the miracles he has done for all of you.
MERRY CHRISTMAS!
Donna Henderson
Donna Henderson <donnamichele@comcast.net>
Orion, mi 48359 - Friday, December 14, 2007 5:52 PM CST
WELCOME HOME HEIDI.MERRY CHRISTMAS.
THE RUBECK FAMILY <trmr01@charter.net>
EASTHAMPTON , MA - Friday, December 14, 2007 9:24 AM CST
Hi Heidi and Paul,
SUCH GREAT NEWS!! I'm so glad Heidi is coming home.
Dawn <dawnand3dogs@charter.net>
- Thursday, December 13, 2007 3:08 PM CST
YAAAWWWWHHHHHOOOOOO and Welcome Home Heidi!
Hope you all have a wonderful and blessed Christmas together..
Hugs and prayers,
LeeAnne, Sammi and the entire Bye family
LeeAnne Bye <allenleeannebye@aol.com>
Nj - Thursday, December 13, 2007 8:17 AM CST
Hi Paul,
Saw Nick and Katie in church today!! Sounds like they were having a great weekend.
Dawn <dawnand3dogs@charter.net>
- Sunday, December 9, 2007 5:41 PM CST
So thankful to hear the hope in your words.
Keep us posted.
Praying and thinking of you!
Sh
Floyds Knobs, - Saturday, December 8, 2007 4:56 PM CST
Very very good news!!
Dawn <dawnand3dogs@Charter.net>
- Friday, December 7, 2007 8:19 PM CST
Glad that Heidi is closer to home. I know that is easier on you and the kids. Praying for you all. If you need to chat or vent, you know where you can find me lol.
www.caringbridge.org/visit/paM2007
pam <sylteach@aol.com>
- Monday, December 3, 2007 3:43 PM CST
Hi Paul,
We are praying for all of you, that things will get better soon. Bonnie had a terrible time with her lungs when she was septic with MRSA (it's beginning to feel like we mark time with each new infection....instead of naming the month and year - we refer to "the time when she was septic with ____").
Have you seen the http://www.lotsahelpinghands.com site? We have been using it for "Bonnie sitters" for when her dad and I have to work. It reduced a great deal of the scheduling headache.
I'm glad your church is helping out.....I'm sure that they are glad for the opportunity to serve :).
Tell Heidi that there are a couple of "desert rats" praying for her.....
Linda Marie Codier www.caringbridge.org/az/bonniemarie <lynmarieco@cox.net>
Mesa, AZ USA - Friday, November 30, 2007 7:49 PM CST
We are happy that Heidi seems to be doing better. It will be great to have her near the kids again! Keeping you in our thoughts and prayers. ~The Ouellette Family
Jacquie Ouellette <jcjck@verizon.net>
- Thursday, November 29, 2007 10:03 AM CST
Paul, I'm so glad that Heidi is getting better. That's great that she will be back in western MA, soon. I'm sure that Nick and Katie (and you, too) miss seeing her and having her close. I will continue to keep all of you in my thoughts.
Sarah Kelleher-Mochak <sarkellmo@comcast.net>
Florence, MA - Tuesday, November 27, 2007 6:40 AM CST
Hi guys. Paul I am glad you were able to get away to your family's for a bit as you need a break every once in awhile esp with having Heidi in the hospital. Ugh MRSA. I will certainly keep you all in my prayers and I wish there was more I can do.
www.caringbridge.org/visit/pam2007
pam <sylteach@aol.com>
- Monday, November 26, 2007 9:25 PM CST
Paul
I wanted you to know that we're continuing prayers for Heidi. I can't even imagine how hard that all of this must be on you, the children, and Heidi.
Karen Nelson <KMNelson86@aol.com>
Sanford, NC USA - Monday, November 26, 2007 10:25 AM CST
Hi Paul,
I hope you will have a nice Thanksgiving with your parents and the kids, and do enjoy the class reunion. I"m praying that Heidi will be showing improvement soon.
Dawn <dawnand3dogs@charter.net>
- Wednesday, November 21, 2007 2:38 PM CST
Just stopping by to wish you a wonderful Thanksgiving! I will be praying for Heidi and for you all.
Love, MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Monday, November 19, 2007 7:00 PM CST
My thoughts are with all of you. YOu all are so strong. I am gland you have people around you that can help.
Paul, I wish I had know it was Heidi in the ICU. Andy was just inpatient. I thought some one was in the PICU. Not sure Heidi would have wanted company. My thoughts and prayers are with your family. Love the MacLeans
Erin <charlieerinwill2@msn.com>
sandwich, ma usa - Sunday, November 18, 2007 7:44 PM CST
((((((Coleman Family))))))...big hugs and prayers too...so sorry to read Heidi has been having such a rough time Paul..which I know means you all too..Praying for all of your dear family that Heidi is feeling better very soon and home to her precious family... Prayers and hugs..God Bless,
LeeAnne, Allen Bye and family..
LeeAnne <allenleeannebye@aol.com>
NJ - Sunday, November 11, 2007 8:37 PM CST
Thank you for the email.
Bless you. And--yes, keep in touch.
www.caringbridge.org/in/oliviablinndekold
Floyds Knobs, IN USA - Saturday, November 10, 2007 4:54 AM CST
Prayers for all of you....wish we lived closer so we could help with the kids.
Paul, please take care of yourself too!
Justine and Samantha www.caringbridge.org/ma/samantha
- Saturday, November 10, 2007 3:52 AM CST
hi Paul,
Thanks for the update, it is encouraging to know that Heidi is slowly improving.
Dawn <dawnand3dogs@charter.net>
- Thursday, November 8, 2007 6:12 AM CST
I'll be keeping all of you in my thoughts.
Sarah Kelleher-Mochak <sarkellmo@comcast.net>
Florence, MA - Monday, November 5, 2007 12:36 AM CST
we will pray for you.i hope things get better soon
love
the rubecks
melanie rubeck <trmr01@charter.net>
easthampton, ma - Saturday, November 3, 2007 6:40 PM CDT
we will pray for you.i hope things get better soon
love
the rubecks
melanie rubeck <trmr01@charter.net>
easthampton, ma - Saturday, November 3, 2007 6:39 PM CDT
We will keep you in our prayers.
Love The Ouellette's
Jacquie <jcjck@verizon.net>
- Friday, November 2, 2007 7:15 PM CDT
Hi Paul,
Keeping your whole family in my prayers... I am so sorry Heidi is so sick. I wish I lived closer so I could help you out with the babysitting! I used to LOVE babysitting when I was younger and miss it now.
Please know that so many of us love and care for your family. I pray that Heidi feels better soon and is able to get off of the vent. You remind me so much of Dave with your love for your family and how you are the glue that holds them all together. Hoping for a break for you, too!!.....
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa >
- Friday, November 2, 2007 12:38 AM CDT
Paul,
I'm praying for Heidi.
Dawn <dawnand3dogs@charter.net>
- Friday, November 2, 2007 6:57 AM CDT
Happy Halloween from our family to yours!!
Love The Ouellette's
Jacquie <jcjck@verizon.net>
- Wednesday, October 31, 2007 12:57 AM CDT
Hi guys..how are things? Be goo Heidi, Nick and Katie lol. Praying gor ya.
www.caringbridge.org/visit/pam2007
pam
- Thursday, October 18, 2007 1:22 PM CDT
Paul, Thanks for taking the time to update us all and keeping us a part of your family's busy life. Take care of yourself and know that we pray for you and your family every day! ~Jacquie O
Jacquie <jcjck@verizon.net>
- Wednesday, October 17, 2007 2:34 PM CDT
Paul, Thanks for taking the time to update us all and keeping us a part of your family's busy life. Take care of yourself and know that we pray for you and your family every day! ~Jacquie O
Jacquie <jcjck@verizon.net>
- Wednesday, October 17, 2007 2:34 PM CDT
JUST STOPPING BY TO SAY HI.I DO KNOW HOW IT CAN BE WITH THE KIDS!!!I HOPE HEIDI IS FEELING BETTER.
GO SOX!!!!!!!!!
MELANIE,TOM,LILLY,JORDAN&MAGGIE RUBECK <trmr01@charter.net>
EASTHAMPTON, MA USA - Thursday, October 11, 2007 8:47 AM CDT
Ok..Heidi I am putting my foot down now and letting you know you have had enough rest....its time to get home and make paul wear a hat on his head when he is out...keep katie from nick and Nick from Katie.....Now do you understand me? LOL...
I really do wish you all the best and obviously mommy is needed at home or you will all fall apart.
as for the story....ROTFLOL...I wish I could see this one.
I hope you get it completed...make it easy!
Praying for all of you, and thank you for your prayers as well...
Donna Thorell <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Monday, October 8, 2007 9:54 PM CDT
Hi Paul,
I hope the doctors can determine the source of the fever and get Heidi back home from today's ER visit very soon. Hang in there.
Dawn <dawnand3dogs@charter.net>
- Friday, October 5, 2007 2:01 PM CDT
Heidi, I am so glad you are home. I hope you had a good birthday! Keeping you all in my thoughts and prayers.
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
IA - Wednesday, September 26, 2007 8:54 AM CDT
Happy Birthday Heidi! Hope you were able to attend the Fall Festival, the weather was perfect. I see the kids in the morning on the playground, I can't believe Nick is in fourth grade! Time flies. Take Care.~Jacquie
Jacquie <jcjck@verizon.net>
- Monday, September 24, 2007 9:06 AM CDT
Hi Heidi,
Happy Birthday. The weather cooperated nicely for your birthday, hope it was great!
Dawn <dawnand3dogs@charter.net>
- Monday, September 24, 2007 5:21 AM CDT
HAPPY BIRTHDT HEIDI!! Iam glad you were able to get home in time to spend your birthday with your family. Hope you were able to get to the Fall festival today and had a nice time! I think of you often. I know its been quite a while since we last but PLEASE know that you are in my thoughts and prayers alot. I would love to talk to you sometime when you are up for it. Also remembering your sweet angel, Heather.
Hugs
Heather Schwenk <hjaschwe@fast.net>
- Saturday, September 22, 2007 9:53 PM CDT
HAPPY BIRTHDAY HEIDI!!!WHAT A BEAUTIFUL DAY TO GO TO THE FALL FESTIVAL,I HOPE YOU HAVE FUN.I'M GLAD THING ARE GOOD.I HOPE YOU FEEL BETTER SOON PAUL.
THE RUBECK FAMILY <trmr01@charter.net>
EASTHAMPTON, MA USA - Saturday, September 22, 2007 1:45 PM CDT
Alex and Koda are stopping by to say hello. We are thinking about you all.
MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Wednesday, September 19, 2007 5:00 PM CDT
Remembering Heather Today... God bless your family
www.elisangels.org
Ann "Angel Eli's mommy" <akurtz1974@msn.com>
Brighton, CO USA - Tuesday, September 18, 2007 12:12 AM CDT
praying that heidi is home again soon and will say a special prayer on sun.
pam <sylteach@aol.com>
- Friday, September 14, 2007 6:46 PM CDT
Hi Paul,
Sorry to hear about Heidi, I'm glad things are improving. Hang in there.
Dawn <dawnand3dogs@charter.net>
- Friday, September 14, 2007 5:16 PM CDT
HI guys, Hope you enjoy the first day of school as much as we do!! Woohoo!! Jay and Jacquie Ouellette
Jacquie <jcjck@verizon.net>
- Tuesday, September 4, 2007 7:26 AM CDT
I can see Nick doing that..rotfl...hope Katie and Heidi are feeling better..souds like Medicaid here too.
http://www.caringbridge.org/visit/pam2007
pam <sylteach@aol.co>
- Sunday, August 26, 2007 8:18 PM CDT
Hello Heidi and Pauls and Nick and Katie. Hope you are doing well and I will try and visit again soon.
Heather <HCDrieling@aol.com>
massena, ny - Thursday, August 16, 2007 7:51 PM CDT
Alex is flying by to say hello! Hope you all are having a fabulous summer.
Love, MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Sunday, August 12, 2007 9:50 AM CDT
It may be summer but I'm still thinking of you and the kids. My thoughts are with the entire Coleman clan. See you kids soon!
Chris Strong <cstrong90@verizon.net>
- Saturday, August 4, 2007 7:53 PM CDT
Thanks for taking the time for the updates! Your family's inner strength still amaze's me! God Bless~Jacquie
Jacquelyn Ouellette <jcjck@verizon.net>
- Thursday, August 2, 2007 3:53 PM CDT
Hi Paul and Heidi,
Sound like you've had a really busy schedule of doctor appointments. I'm glad Heidi is holding her own and being able to stay out of the hospital. Hope the kids are having a great summer.
Dawn <dawnand3dogs@charter.net>
- Wednesday, August 1, 2007 5:50 AM CDT
Thanks for updating the page, Paul. I think of all of you often. I'm looking forward to working with your family again this school year. Please pass on a hello to Heidi.
Sarah Kelleher-Mochak <kellehermochak@verizon.net>
Florence, MA - Saturday, July 28, 2007 10:20 AM CDT
JUST STOPPING BY TO SAY HI.
MELANIE <trmr01@charter.net>
EASTHAMPTON, MA - Friday, July 27, 2007 7:53 AM CDT
Hi Heidi and Paul and Nick and Katie,
Hope you are all having a great summer!
Dawn <dawnand3dogs@Charter.net>
- Tuesday, July 10, 2007 6:55 PM CDT
Praying for you all.
Sh
- Friday, July 6, 2007 9:14 AM CDT
Hi Heidi and Paul... I guess I can take if from the guest book entries that no news is good news??? Looks like you all made it to Oley... (I was there in spirit...did you feel me???) I've been wondering how you are Heidi. I hope this summer gives you relief, wonderful times and memory making moments, and a plateau on which to perch for a while. Praying for you all daily.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, July 2, 2007 9:47 PM CDT
So utterly thankful to have met your family IN PERSON. I so enjoyed my time spent with Katy on the marsh trip; something I'll always hold closely. And to briefly speak to each of you; I wish there was more time, less miles between our "people"--
To see Nick on Heidi's lap, to see his holding his mother's hand as she rolled along next to him--the effort she takes to maintain being Mom is pure inspiration.
I know you didn't choose to be inspirational but your family truly is--and you do it with such humility and grace.
Remembering your Heather, your baby girl.
Sheila (www.caringbridge.org/in/oliviablinndekold) <sdekold@mac.com>
Floyds Knobs, IN USA - Saturday, June 30, 2007 11:28 PM CDT
Hey Paul, How about a July update? Hope all is well!
Dawn <dawnanddogs@charter.net>
- Friday, June 29, 2007 4:28 PM CDT
JUST STOPPING BY TO SAY HI.I HOPE ALL IS WELL.TRY TO STAY COOL.
MELANIE RUBECK <trmr01@charter.net>
EASTHAMPTON, MA - Wednesday, June 27, 2007 8:36 AM CDT
Glad to hear things are going well. Thank you for all your visits and thoughts during Andrews transplant. It is amazing how normal conversation can up lift you more than sleep. Good luck with the kids this summer. Will be thinking of you all.
Erin macLean www.caringbridge.org/ma/andymaclean <charlieerinwill2@msn.com>
sandwich, MA 02563 - Monday, June 25, 2007 6:10 PM CDT
Happy Summer! School is out again, hooray. Enjoy! Hope it's a very healthy and happy summer for all of you!
Dawn <dawnand3dogs@charter.net>
- Tuesday, June 19, 2007 2:34 PM CDT
HI guys, It was great to see you at Katie and Chase's family presentation. Can you believe they are finishing second grade already!!!! Sorry we didn't get a chance to talk, but wanted to let you know I was happy you were there! ~Jacquie
Jacquie Ouellette <jcjck@verizon.net>
- Friday, June 15, 2007 8:26 AM CDT
I'm praying for all the medical issues on your plate right now.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, June 6, 2007 8:56 PM CDT
yeah!!! an update! I am glad Heidi is doing well and no recent calzones lol. Sorry Heidi you arent going to live that down. I do not like reglan at all...i am allergic so i really dont like it. My new port actually let blood get drawn from it today so I am excited. First time I have had a nice port in 2 years. It was "oozing" according to the nurse after she pulled the needle out but it was what was left of the fluid that was on top of it while it was healing so it was rather amusing. I know you cant wait until summer. Hope you continue with your good luck with your diabetes too.
pam <sylteach@aol.com>
- Tuesday, June 5, 2007 0:01 AM CDT
What great news about Heidi's long stretch of good health. I hope it continues on and on!!
Thanks for the update on Nick, sounds like you have some more good information from all the tests.
I hope everyone stays healthy!
Dawn <dawnand3dogs@charter.net>
- Sunday, June 3, 2007 6:46 PM CDT
Hey guys, Thinking about you today. Hope all is well.
~Jacquie and the boys
Jacquie <jcjck@verizon.net>
- Tuesday, May 29, 2007 7:36 AM CDT
ok coleman family....sometimes it is a good idea to update!
I am praying no news is great news!
Love you ALL so much and I am hoping to see you guys soon.
Donna Thorell <iluvdizney2@comcast.net>
- Monday, May 28, 2007 9:24 PM CDT
Happy summer!
Love, Alex and MaryBeth
MaryBeth <attnymb@aol.com>
- Sunday, May 27, 2007 4:51 AM CDT
http://www.GlitterMaker.com/ - Glitter Graphics - MySpace Layouts - Site Clocks
pam <sylteach@aol.com>
- Sunday, May 20, 2007 4:44 PM CDT
i am gonna start looking up the signs for "beat Paul up so he will update" or "let heidi stopping falling asleep on the computer" lol. I hope you had a great Mothers Day. I hope Nicks endo helps some..of course I know he would love if Boost Breeze started being made again as resource is YUCK. hope to talk to you soon.
pam <sylteach@aol.com>
- Sunday, May 13, 2007 11:56 PM CDT
Dear Heidi,
Here's wishing you a Mother's Day
That's filled with every pleasure,
And a future that's as happy
As the memories you treasure!
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, May 13, 2007 10:49 AM CDT
Hey Guys! I might need to quote again..hmmmmmm. I hope they have been able to find what is up with Heidi so she can spring the club med scene.
Pam- messages 4 smiles <sylteach@aol.com>
- Tuesday, May 1, 2007 9:31 PM CDT
Paul and Heidi,
Just stopping in to say hello, and I hope that Heidi gets out of the hospital in time for the sign language class.
Dawn <dawnand3dogs@charter.net>
- Sunday, April 29, 2007 8:19 PM CDT
Hi Heidi and Paul,
I"m glad that you are back home, Heidi, to enjoy school vacation with the kids! Hope you are having a good week now.
Dawn <dawnand3dogs@charter.net>
- Thursday, April 19, 2007 5:43 AM CDT
Hi Heidi,
I hope you're home now. I miss talking to you so much. If you're up for emailing, please feel free to contact me. I think of you guys so much. I wish you were all coming on the NS cruise!
Feel better!!!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, April 15, 2007 10:39 PM CDT
hey guys, just prayign for you both and letting you know I am here if you need anything...and I mean anything!
and Heidi....a calzone???? what were you thinking? LOL...actually it was a great choice of foods, but dont you think maybe a little less next time?? goofball!
luv u both!
Donna Thorell <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Saturday, April 14, 2007 8:44 PM CDT
Hello. Sorry we havent been ableto chat in a bit but between my recovery and my cranky computer I havent been on much. But I thing and pray for you guys daily.
pam(www.pamsstory.org) <sylteach@aol.com>
- Wednesday, April 11, 2007 4:26 PM CDT
This special Easter greeting
comes across the miles today
To let you know you're thought of
In the very warmest way.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, April 8, 2007 11:45 AM CDT
Hi Heidi...Hi Paul... Just stopping in to say Happy Easter! I think of you all so very often...please know you are in my thoughts and prayers
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, April 8, 2007 9:44 AM CDT
Hi Paul and Heidi,
Thanks for the updates on everyone, it sounds like things are going better in some ways. Wishing Heidi the best with her sign language learning, I hope that you will all pick up on it really fast. Keep us posted on Nick's stuff, so much for the doctors to figure out, I'm glad you were able to get all the tests scheduled. Keep us posted. Thinking of you all...
Dawn <dawnand3dogs@charter.net>
- Friday, March 30, 2007 6:34 PM CDT
Alex is stopping by to say hello!
Alex’s Page
Love,
MaryBeth <attnymb@aol.com>
- Sunday, March 25, 2007 5:06 AM CDT
HELLO,JUST STOPPING BY TO SAY HI,HOPE ALL IS WELL.
THE RUBECKS
MELANIE <trmr01@charter.net>
EASTHAMPTON, MA - Saturday, March 24, 2007 7:12 AM CDT
Checking in--praying this moment that all is well.
Sh
- Tuesday, March 20, 2007 11:41 PM CDT
Hi Guys,
Glad to hear everyone has been home for awhile. Keeping you in our thoughts and prayers. Love The Ouellettes
Jacquie <jcjck@verizon.net>
- Friday, March 9, 2007 4:43 PM CST
Hi Paul,
Glad to know that things are going pretty good considering. Thanks for the update!
Dawn <dawnand3dogs@charter.net>
- Friday, March 2, 2007 5:02 PM CST
JUST STOPPING BY TO SAY HI.ALWAYS THINKING OF YOU ALL
MELANI E RUBECK <trmr01@charter.net>
EASTHAMPTON, MA USA - Friday, March 2, 2007 7:44 AM CST
Alex is stopping by to say have a great week! MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Wednesday, February 28, 2007 10:21 AM CST
Hi Coleman Family, Hoping no news is good news. Keeping you in our thoughts and prayers. Love The Ouellette's
Jacquie Ouellette <Jcjck@verizon.net>
- Monday, February 26, 2007 1:30 PM CST
Hi Heidi and Paul! Greetings from WAY upstate NY.
Heather <HCDrieling@aol.com>
Massena, NY - Sunday, February 11, 2007 1:25 PM CST
Hi Heidi,
Just dropping by to say "Hi"and to let you know that I am thinking of you. Keeping you in my prayers and close to my heart. I wish we lived closer to each other, oh what FUN we would have!! I hope that you are feeling better and that life is getting better for you. Keeping you in my thoughts and prayers. Tell Paul I said Hi and the kids too!!!
God Bless you....
Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, February 9, 2007 11:42 PM CST
Thinking of you. The Ouellette Family
Jacquie <jcjck@verizon.net>
- Thursday, February 8, 2007 2:48 PM CST
Paul and Heidi--
Praying for you. . .
Sheila <sdekold@mac.com>
Floyds Knobs, IN USA - Wednesday, February 7, 2007 10:05 PM CST
Hi Heidi and Paul,
I hope things are going well for you at the moment. Thinking of you,,,
Dawn <dawnand3dogs@charter.net>
- Sunday, February 4, 2007 8:03 AM CST
Alex and Pluto are stopping by to say hello!MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Monday, January 29, 2007 12:10 AM CST
Hi Paul and Heidi,
I hope the visit to NEMC went well today.
Dawn <dawnand3dogs@charter.net>
- Thursday, January 25, 2007 5:20 PM CST
GREAT NEWS!!!! Welcome home!
Love Kerry, Hailey & Brenna
Plymouth, MA - Thursday, January 25, 2007 8:48 AM CST
Welcome Home Heidi!
Jacquie Ouellette <jcjck@verizon.net>
- Wednesday, January 24, 2007 6:08 PM CST
Thinking of you.
Angela(Heather Grace's mom)
Ma - Wednesday, January 24, 2007 1:27 PM CST
WELCOME HOME HEIDI!!JUST IN TIME FOR THE SNOW!!!JUST CHECKING IN,PAUL SAID YOU SHOULD BE HOME,I JUST WANTED TO CHECK AND SEE HOW YOU ARE DOING.
MELANIE,TOM,LILLY,JORDAN,MAGGIE RUBECK <trmr01@charter.net>
EASTHAMPTON, MA - Wednesday, January 24, 2007 6:57 AM CST
Hooray! Heidi, I'm glad you are finally home, and feeling better! I hope the visit to NEMC goes well on Thursday.
Dawn <dawnand3dogs@charter.net>
- Wednesday, January 24, 2007 5:41 AM CST
Heidi,
I am so glad that you are HOME!! It was so nice talking to you the other night while you were at NEMC. Sorry, that our talk ended so soon, but I think your minutes on the card were gone. That's okay, we still got to chat for a short while. I hope your feeling better and being home will be the BEST medicine for you. Good Luck with your appt. with your new PCP, and lets us all know how that went.
Paul, it was nice talking to you too the other night. I often wonder how you do everything you do. You have a lot on your shoulders but you always seem to get everything done. My husband knows what it is like to take care of many different things at once and to be in more than one place at the same time!! heheehe Hang in there!!
Keeping you both including Nick, and Katie in our prayers and close to our hearts. If you need anything please don't hesitate to call us.
Love and hugs,
Ann-Marie and Kim
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, January 23, 2007 10:37 PM CST
Paul and Heidi
I am glad to hear Heidi is starting to feel better. My husband can assoc with your need to be in two places at once. I hope she can stay home for a long time and be with the family... best medicine.
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville , PA - Tuesday, January 23, 2007 8:27 PM CST
Paul & Heidi,
I hope things get "easier" soon....and that all of you can be together at home :).
We're praying for all of you,
Lyn
Bonnie's mummy <lynmarieco@cox.net>
Mesa, AZ USA - Monday, January 22, 2007 10:46 PM CST
Hey guys,
Very glad to hear things are on the upswing. Wishing you a speedy trip home, Heidi. Take Care. Love the Ouellete's
Jacquie Ouellette <jcjck@verizon.net>
- Friday, January 19, 2007 10:30 AM CST
Paul,
I hope things have improved since Tuesday. I am praying that this week will bring steady improvement for Heidi and that she can get home again. Wishing everyone a good weekend.
Dawn <dawnand3dogs@charter.net>
- Saturday, January 13, 2007 7:28 AM CST
Praying for you guys. I am so sorry to hear the latest complications.
Love Alex and MaryBeth
MaryBeth <attnymb@aol.com>
- Friday, January 12, 2007 5:50 PM CST
Oh Paul, it does sound very stressful, downright scary..please tell Heidi she is in my thoughts and prayers. Hoping this goes as smoothly as it can and she is feeling better soon. Hugs and prayers for all of your dear family!
LeeAnne, Sammi and family
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Friday, January 12, 2007 7:53 AM CST
I am sorry to hear about the many complications going on. You are in my thoughts and prayers. I hope things go as smoothly as possible.
Tammy Martin <dtmartin6281@sbcglobal.net/www.caringbridge.org/mi/martin>
Galesburg, MI - Wednesday, January 10, 2007 2:08 PM CST
Dear Paul and Heidi,
Our thoughts and prayers are with you during this stressful procedure. Praying that all goes well!
Love Jay, Jacquie, Colby and Chase
Jacquie Ouellette <jcjck@verizon.net>
Easthampton, MA USA - Wednesday, January 10, 2007 1:52 PM CST
I HOPE EVERYTHING GOES WELL WITH HEIDI AND SHE FEELS BETTER,SO SHE CAN COME HOME SOON.I THINK AND PRAY FOR YOUR FAMILY EVERYDAY.
MELANIE,TOM,LILLY,JORDAN,MAGGIE RUBECK <trmr01@charter.net>
EASTHAMPTON, MA - Wednesday, January 10, 2007 8:12 AM CST
(((((((Paul, Heidi and family!))))) So very sorry to read Heidi is in again and sick with pneumonia and sepsis. Praying she improves soon and that this year prooves to be a healthier one, praying for strength, love, faith and continued support for all of you! Lord knows you are a VERY SPECIAL family.."keep the faith" as we say and hang tough! Hugs and we are keeping you in our prayers for all of you!
LeeAnne, Sammi and family
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aol.com>
- Tuesday, January 9, 2007 3:42 PM CST
Hi Paul,
Thanks for updating so often in the midst of all you have to do to keep things running in the family. Things change SO fast. Praying for Heidi. I am glad that she is in NEMC where she can get the best of care given how complicated things are at the moment with the new line needed, and the pneumonia. Take care of yourself!
Dawn <dawnand3dogs@charter.net>
- Saturday, January 6, 2007 7:12 AM CST
Wishing all of you peace, health and happiness in 2007. Happy New Year.
Sarah Kelleher-Mochak <kellehermochak@verizon.net>
- Wednesday, January 3, 2007 7:12 PM CST
Wishing you many blessings and a very happy new year!
Love Alex and family
MaryBeth <attnymb@aol.com>
- Monday, January 1, 2007 10:26 AM CST
Dear Paul and Heidi...stopping in to wish you both
and a Healthier New Year as well!!!Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, December 31, 2006 8:36 PM CST
Heidi and Paul,
I am so glad you got to enjoy Christmas at home, especially after it seemed like an impossibility. I'm glad that Cooley has been able to take care of Heidi well enough to prevent trips to Boston. I'll be praying that Heidi will not get any more of those infections that are so troublesome. Enjoy your school vacation week together, I'm sure the kids are glad for the break.
Dawn <dawnand3dogs@charter.net>
- Thursday, December 28, 2006 7:07 AM CST
Tears to my eyes...so thankful the children were blessed with much--and most of all--their Mama's home.
Praying...
Sh
- Wednesday, December 27, 2006 9:36 PM CST
Merry Christmas to the Coleman Family!!
I am so delighted that Heidi was able to make it home for Christmas!! A miracle indeed. PTL!! Now, Heidi don't go and overdo it or you will end up back in the hospital and we don't want you to go back there. I am glad to hear that the kids enjoyed their Christmas. Keeping your whole family in my prayers, even Heather!! For she shared Our Savior's Birth with him!!
Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, December 26, 2006 5:47 PM CST
Hello Heidi,
I am a friend of Malisa's she mentioned on her site that you could use some prayers right now. I just wanted you to know that you are in my thoughts and prayers this holiday season. Happy Holidays!
Darcie <Sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Sunday, December 24, 2006 9:55 PM CST
Wishing you and your Family happy holidays...
From our Family to Yours, Special Wishes for a Joyful Christmas filled with Bright Blessings of Magical Dreams, Tender Love and Heart Warming Memories....
MERRY CHRISTMAS!!!
Happy New Year!!!
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, December 24, 2006 10:29 AM CST
Heidi,
Sorry to hear that you are back in the Hospital. And I am so sorry that I missed your call last week while I was in Boston. My cell phone is messing up BIG time. I get some messages and others I don't. It would have been great to talk to you.
I know it is easier on the family if you stay at the local hospital but I think that the Boston (NEMC) hospital is better at getting to the bottom of things. I hope it is just a UTI and that it isn't a line infection. Not that either one is a good infection to have, but those Line infections really do suck.
I know that this time of the year is going to be very difficult for you and your family. Please know that I am praying for you and that I hope you are able to be home for Christmas. If I can do anything for you or your family just let me know. I miss you and love you tons!!
Wishing you, Paul, Nick and Katie a Very Merry Christmas and a Happy Healthy New Year!! I just know that 2007 is going to be better than 2006, I have it on good authority!!
Love, hugs, and blessings coming your way,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, December 23, 2006 1:28 PM CST
Praying for Heidi.
Dawn <dawnand3dogs@charter.net>
- Wednesday, December 20, 2006 5:21 PM CST
Heidi,
Great talking with you...
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, December 16, 2006 8:59 PM CST
We continue to keep you and your family in our thoughts and prayers. Love Jacquie
Jacquie Ouellette <jcjck@peoplepc.com>
Easthampton, - Saturday, December 16, 2006 8:21 PM CST
Hi Heidi and Paul,
I hope the kids are getting excited about Christmas. Guess we won't have snow unless the weather changes dramatically. Heidi, I'm praying for your health to be stable through the upcoming holidays, and for your breathing problems to resolve.
Dawn <dawnand3dogs@charter.net>
- Saturday, December 16, 2006 10:21 AM CST
Paul,
Continued prayers for Heidi and the rest of your family. Praying for you to have rest and strength, peace and joy.
God rest ye merry gentlemen, let nothing you dismay, remember Christ our Savior was born on Christmas day, to save us all from Satan's power when we were gone astray, oh, Tidings of Comfort and Joy, comfort and joy...
comfort and joy.
Sh <sdekold@mac.com>
Floyds Knobs, IN USA - Saturday, December 9, 2006 8:22 PM CST
Many prayers for you and especially Heidi. God Bless www.caringbridge.org/oh/skyecoleycole
Tamm Cline <Tamm06@aol.com>
- Friday, December 8, 2006 3:55 PM CST
Sending prayers for Heidi.
Dawn <dawnand3dogs@Charter.net>
- Thursday, December 7, 2006 4:55 AM CST
Hi Paul,
Thanks for the update, I hope that the doctors can treat Heidi successfully right here this time so that she can be close to home. Tell Heidi I'm thinking of her and hope she will be back home very soon.
Dawn <dawnand3dogs@charter.net>
- Tuesday, December 5, 2006 7:43 AM CST
Hi Paul,
Please tell Heidi I am thinking of her and praying for her. We have to figure out a better way to celebrate fun occasions than spending them in the hospital! Wish Nick a happy birthday for me. Hoping Heidi gets the care she needs and is able to stay locally (Dave likes it when I am closer to home, too....makes it a lot easier on him to come visit).
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Monday, December 4, 2006 11:04 AM CST
Hi Paul and Heidi,
I'm glad that you had a nice Thanksgiving. Nick gave some rave reviews of it, so I know he certainly had a great time! Let's hope this warm weather (without snow!) continues till spring!
Dawn <dawnand3dogs@charter.net>
- Monday, November 27, 2006 5:13 PM CST
Paul and Heidi, Paul I'm glad that you have so many things to be thankful for this year. I feel the same way. What would we do without our Faith? Losing my Skye this past year was so difficult and I miss her so so much but I feel the same way you do. I'm thankful she is free from pain and tubes and in her perfect body and in Heaven. I hope you guys have a blessed holiday season and that Heidi continues to feel well. God Bless www.carinbridge.org/oh/skyecoleycole
Tamm and Angel Skye <Tamm06@aol.com>
- Saturday, November 25, 2006 11:36 AM CST
Dear Heidi, PAul and Family,
We pray God’s blessings be with you
In abundance even more
For you have been so special to us
A blessing from the Lord
We just want for you to know
How much you mean to us
For all you’ve done, and for who you are
We appreciate so much.
Wishing your family a Happy Thanksgiving.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Sunday, November 19, 2006 10:03 AM CST
Hi Heidi and Paul,
I hope you are having a good weekend. Heidi, I hope you'll have more days this week like you had last week, feeling good and on your feet.
Dawn <dawnand3dogs@charter.net>
- Sunday, November 19, 2006 6:18 AM CST
Alex is stopping by to say have a great week!MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Monday, November 13, 2006 6:19 PM CST
Paul and Heidi, You and your family amaze me every day. Keeping you all in our thoughts and prayers.
~The Ouellette Family
Jacquelyn Ouellette <jcjck@verizon.net>
Easthampton, MA - Sunday, November 12, 2006 6:18 PM CST
Hi Paul,
I think I lost my last entry.
Please know that I am praying for your whole family. ((Nick)) what a dear of a boy, how much he has seen already--and for Heidi, my heart goes out to her. In looking back of the photos when Heather was so sick, and then her famous one--her smile, and the last family photo--I'm just asking God to show me the way.
Living life abundantly. Keeping our eyes on Jesus.
Praying for good support for you locally and for the house changes to occur to make things slightly (ever so slightly) easier.
Thinking of your family.
Sh <sdekold@mac.com>
Floyds Knobs, IN USA - Saturday, November 11, 2006 2:49 AM CST
Paul,
I wish there was something I could do to help your family. I am praying.
In looking again at the photos of Heather so sick, the famous one of her smile and your last family photo it reminds me to live life daily. Praying for good days so you can make those precious memories.
I'll cut and paste the part about Heidi requesting some support from others like her onto TPNsupport.
And you, may God give you the strength needed.
((Nic)) what a sweet boy.
Sh
- Saturday, November 11, 2006 2:40 AM CST
We hope things get better for you.
Melanie & Tom Rubeck <trmr01@charter.net>
- Thursday, November 9, 2006 6:26 PM CST
Happy Halloween and Harvest to you all! Hope you get the sleeping issue fixed. Paul remember to take care of yourself. Love ~Jacquie and the Ouellette Boys
Jacquelyn Ouellette <jcjck@verizon.net>
Easthampton, MA USA - Thursday, November 2, 2006 5:05 PM CST
Alex (in his Diego costume) is just stopping by to wish you a HAPPY HALLOWEEN!
Love, MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Tuesday, October 31, 2006 10:10 AM CST
Paul and Heidi, I thought I would drop in to say hello. Even though we still have never met during our numerous trips to Boston, I keep updated on you as much as possible. I just wanted to let you know I am keeping you in my thoughts and prayers. How much Dilaudid are you on? I am on it continuous with the pump.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
IA - Thursday, October 26, 2006 10:23 PM CDT
Checking in. . .
Sh <SheDeKold@aol.com>
- Monday, October 23, 2006 3:58 PM CDT
Hi Paul and Heidi,
Thank you for the update. I'll be praying for you in this latest round of dealing with more medical questions.
Dawn <dawnand3dogs@charter.net>
- Wednesday, October 18, 2006 6:12 AM CDT
Paul, keep us posted on Heidi's sleeping. . .concerning that is for sure.
Sh <sdekold@mac.com>
- Wednesday, October 18, 2006 0:10 AM CDT
I was thinking about you guys and thought I would drop in and say HELLO!
What is Nick planning to be for Halloween?
Much love
www.elisangels.org
Ann "Angel Eli's Mommy" <akurtz1974@msn.com>
Brighton, CO USA - Tuesday, October 17, 2006 6:22 PM CDT
Just wanted to drop in and let you know that we are thinking of you!
Love, MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Saturday, October 14, 2006 6:27 PM CDT
Hi Heidi and Paul,
Glad you ar home again, Heidi. Paul told me about the problem with the tube cracking yesterday, one thing after another! I hope that issue will be solved shortly. Paul, hope you are over your cold soon, it's the season for all that stuff to keep going around over and over till spring! Take care, both of you, and I hope the kids are doing well.
Dawn <dawnand3dogs@charter.net>
- Thursday, October 12, 2006 5:10 AM CDT
Thinking of you all. Love Jacquie and the Ouellette boys
Jacquelyn Ouellette <jcjck@verizon.net>
Easthampton, MA USA - Monday, October 9, 2006 8:42 PM CDT
Hi Heidi and Paul,
Heidi I hope you are feeling better and they decide what to do with your line so you can get home soon. I miss you and our talks.!! Sorry you are having so much trouble. I hope Nick is okay and keeps drinking. My FIL used to drink the Boost Breeze, he liked it too!! Too bad they took it off the market. Hope things go well for you this week.
Keep your Faith and remember HE is in Control
Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, October 7, 2006 5:28 PM CDT
Praying for your entire family. Hold fast to His promises.
Allison <lilqt4u1984@aol.com>
- Thursday, October 5, 2006 7:31 PM CDT
Precious child in Heaven. September 25 is my birthday.
Praying for your dear family--
Sh
- Thursday, October 5, 2006 0:12 AM CDT
Hi Paul and Heidi,
It has been a while since I stopped by but you have been in my prayers daily. I hope your world is treating you more gently these days.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, October 1, 2006 8:21 AM CDT
Hi Paul and Heidi,
I hope things are going smoothly this week!
Dawn <dawnand3dogs@charter.net>
- Thursday, September 28, 2006 7:31 AM CDT
Paul,
Thanks for popping by Eli's Page. I too think of your family often and hold you up in prayer. Really here in Denver we are all still in shock that the Broncos showed up to play. They haven't put on a good show all year. Sorry it had to be over the pats. Even though I am a bronco fan I had the pats to win.
Wishing you all well
www.elisangels.org
Ann "Angel Eli's Mommy" <akurtz1974@msn.com>
Brighton, CO USA - Wednesday, September 27, 2006 1:43 PM CDT
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON ,ALBERTA
, - Tuesday, September 26, 2006 9:33 PM CDT
Heidi and Paul,
Thank you so much for the updates. Kim and I have been away on vacation and just got home. Sorry I missed the chance to sign your guestbook on the anniversary of Heather's passing. Please know that I think of you every single day and I pray that 9/16/06 was a day that brought more smiles than tears. Heather was a special little girl that brighten up the world!! I feel so blessed that I was able to meet and kiss your sweet little girl. I only wish I had more time to know her. I hope you are feeling better Heidi and I can't wait until you get your ear molds for your new hearing aids. They will help so much with your hearing and than we can talk longer on the phone!! hehehe!! LOL!!
Keeping you and your lovely family in my prayers and close to my heart.
All my Love,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, September 24, 2006 8:04 PM CDT
Sharing one of my favorite verses today. Know that I'm here praying so for you right now!
Isa 40:31 But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, September 24, 2006 4:01 PM CDT
Just wanted you guys to know you remain in my thoughts and prayers... Gentle hugs and continued prayers for all of you!
LeeAnne, Sammi and family
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aolc.om>
Northfield, NJ - Monday, September 18, 2006 7:15 PM CDT
Thinking about Heather and your family.
God Bless
www.elisangels.org
Ann "Angel Eli's Mommy" <akurtz1974@msn.com>
Brighton, CO USA - Monday, September 18, 2006 3:28 PM CDT
Thinking of you Heather...Miss you a lot!
Ashley
Springfield, MA 01109 - Saturday, September 16, 2006 8:44 PM CDT
Been thinking of you guys, but more so today. Time doesnt go by when I dont think of Heather. Miss you all.
Sandi, RN <sjfrn98@yahoo.com>
Plymouth, MA - Saturday, September 16, 2006 8:41 PM CDT
Thinking of you all today especially Heather. Hugs to you all!
Love~ Kerry, Brenna & Hailey
Plymouth, MA - Saturday, September 16, 2006 4:09 PM CDT
Praying for you Saturday on your very sad anniversary.
Dawn <dawnand3dogs@charter.net>
- Friday, September 15, 2006 8:49 PM CDT
Hi guys! Just wanted to stop by and say hi. Heidi Idrop you a line when I am feeling a bit better.Praying for you.
pam(www.pamsstory.org) <sylteach@aol.co>
- Saturday, September 9, 2006 9:23 PM CDT
Heidiand Paul -I think of you both often but never sign in. sorry - i really am bad about it. Glad the kiddos like their new teachers. Heather's stone sounds beautiful.
anne_www.caringbridge.org/wi/zachsam
- Saturday, September 9, 2006 8:10 PM CDT
Hi Paul and Heidi,
Sounds like things are busy. Glad that the trip to Boston didn't result in being admitted for anything. Heidi has been home for quite awhile now, which is great. I hope the kids will have a great year ahead in school. Take care, let's hope for some smooth sailing for as long as possible.
Dawn <dawnand3dogs@Charter.net>
- Friday, September 8, 2006 5:22 PM CDT
Hi Heidi,
Just stopping by to say Hi and to let you know that I am thinking of you!! I hope you are doing better and feeling better than the last time we spoke. I am so tired of this RAIN!! When will it stop? I think we are going to have an early Fall this year. I am hanging in, doing about the same. Hope things are okay, haven't heard or read an update from Paul lately. I guess the kids are back in school by now. I hope you ahd a nice labor day weekend.
Keeping you in my prayers as always!! Tell Paul and the kids I said Hi. Be good. God Bless you!!
Love you,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, September 6, 2006 11:30 PM CDT
I don't always sign in--but wanted you to know I've been here...and praying for you...
Sh
- Tuesday, September 5, 2006 0:26 AM CDT
Alex is swimming by to say have a GREAT labor day weekend!
Love, MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Saturday, September 2, 2006 9:30 AM CDT
Keeping you in my thougths and in my prayer's always.
Love Brenda MY LOVING DAD'S SITE <brurka@shaw.ca>
Edmonton,Alberta
, - Monday, August 28, 2006 8:37 PM CDT
Hi Heidi and Paul,
So, the kids are going back to school soon? Hooray! A bit of a break during the day. They'll come home with plenty to talk about, it will be fun for them and you! I'm so glad that Heidi is holding her own at home. It sounds like you have some care, did you fill all those nursing and/or PCA hours? I hope so. The kids had a blast as the REACH picnic, tons of other kids to play with. I'm glad you sent them. Everyone was asking about you, Heidi! Take care, you are in my prayers.
Dawn <dawnand3dogs@Charter.net>
- Monday, August 28, 2006 6:15 AM CDT
hey coleman crew...you know I am here for you all...hey Heidi, I am going to cash in on my coolatta soon! it will be fall before we know it and who wants a cold drink when its cold outside...
Glad the footie thing is helping you. I knew you would make it work!! Love ya all
Donna Thorell <iluvdizney2@adelphia.net (www.caringbridge.org/ma/thorell_kids)>
carver, ma - Sunday, August 27, 2006 8:18 PM CDT
Love your updates. Keeping you and your family in my prayers.
Tammy Wambles <frothy27@yahoo.com>
Murphy, TX - Sunday, August 27, 2006 4:32 PM CDT
Hello Heather and Family- I've been following you for sometime but have not signed in before that I recall. You are in my daily prayers. I'm heading to Cleveland tom to have my gallbladder removed on Wed. at CCF. I will be coming to Boston Sept 16th-23rd to see 3 new doctors as well. I hope that things continue to progress and improve for you Heather. You have come so far!
Allison <lilqt4u1984@aol.com www.caringbridge.org/ky/allison>
Owensboro, KY - Saturday, August 26, 2006 3:31 PM CDT
Hey Heidi...glad to read Paul's update that you are home "still"...lets try to keep it that way for a bit...
Wanted to mention, for what it is worth, that I had a similar sounding rash/blistery thing going on under my dressing with this new central line as well. It was so bad we couldn't get any dressings to adhere. Anyway...FWIW...they finally figured out it was a yeast infection. We treated every 6 hrs round the clock with 2 different creams and had only a very small dressing on, but in about 5 days it was looking really good. YMMV.
Whatever it turns out to be I hope you find some relief soon.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, August 25, 2006 7:38 PM CDT
Hi Heidi: We at Greenfield REACH are thinking of you often. Take Care.
Faith E. Rockwood <whitefoot2@comcast.net>
Bernardston, MA USA - Friday, August 25, 2006 12:44 AM CDT
Hi guys,
Glad to hear everyone is home and enjoying each other!!!You are constantly in our thoughts and prayers. Look forward to seeing the kids on the playground. God Bless.
The Ouellette's Jay, Jacquie, Colby and Chase
Jacquie Ouellette <jcjck@verizon.net>
Easthampton, MA USA - Thursday, August 24, 2006 7:30 PM CDT
Heidi,
I hope the blood sugar problem has resolved over the weekend. Otherwise, I hope that you will get some answers from your doctor very soon!
Thinking of you as September rolls around, you are in my prayers.
dawnand3dogs <dawnand3dogs@charter.net>
- Sunday, August 20, 2006 7:57 PM CDT
Hi Heidi,
It was so nice talking to you last week. I hope you are feeling better. Things with me have been bad for the last 4 days or so. The mito is just getting worse everyday. Although my TPN labs came back good. Thinking about you always and you are always in my prayers. God Bless you my friend.
Love and Hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, August 20, 2006 0:52 AM CDT
Hi Heidi,
I hope things are running smoothly this week and that you are continuing to feel better. Tell Paul to update the webpage!!! :) I'm sure he'll appreciate that!
Dawn <dawnand3dogs@charter.net>
- Thursday, August 17, 2006 8:08 PM CDT
Heidi, I'm so glad to hear you are home and that you don't have the gallbladder pain anymore. That is great! Will be keeping you in my thoughts and prayers.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Wednesday, August 16, 2006 8:07 AM CDT
Hello, I am new to your site. I am trying to "visit" a new site each week to let other mito families know my prayers are with them. I started this after visiting the site of a little girl named Skylar. I saw where you also go to NEMC, we will be making our first trip there later this month.
Sheryl & Trinity
www.caringbridge.org/visit/trinity
sheryl sumlin <sherylsuml@yahoo.com>
Atlanta, GA usa - Sunday, August 13, 2006 9:17 AM CDT
YEAH! I'm so happy to read everyone is HOME! What a great journal update. I know those contractures are NO fun. Keep working on it, and can you say HOT TUB? Sounds like a great Rx to me. Paul, thanks for keeping us all informed and taking such great care of all the family. I'm hoping the two of you can have some time to yourselves sometime soon. Hope to talk soon!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, August 13, 2006 7:28 AM CDT
Hi Heidi,
So very happy to hear that you are HOME!!! I am also happy to hear that you are pain free from the surgery. Sorry to hear that while at Spaulding they couldn't work on walking with you due to your foot. I hope it improves with the cast.
Katie is really going to be surprised when she comes home from camp and sees her Mommy home from "Camp" too!!
Paul you are one awesome husband, you take such good care of Heidi and your love for her shines through with each update and all you do for her. God Bless you both and the kids.
Heidi try to rest and catch up on your sleep. So glad that you are home. I know it isn't fun being at "Club Med" or "Camp Spaulding"
It is amazing that the insurance company will pay for your Cochlear implants. I would have thought they would pay for hearing aid before they would pay for Cochlear implants. But this is great news!!
Keeping you in my thoughts and prayers. I pray that your health improves with each passing day and that soon you will be working on walking again.
Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, August 11, 2006 2:01 AM CDT
Hi Heidi,
I am glad to hear of your progess and that you are coming home this week, and at the same time sad at the ongoing toll that mito continues to take. It's a horrible disease and until you know someone who has it you are unaware of all the people in this state alone who are affected. So many. Keep up the fight. Glad you have such a wonderful husband and kids (one in heaven and two on earth) to help you keep going. Praying for you.
Dawn <dawnand3dogs@charter.net>
- Thursday, August 10, 2006 8:45 AM CDT
Heidi,
Hope you are having a good day. I hope Kaitie enjoyed her Girl Scout Camp!
Dawn <dawnand3dogs@charter.net>
- Tuesday, August 8, 2006 4:57 PM CDT
Paul--
Please let Heidi know I'm checking on her, praying for her.
Press on.
Sh
Floyds Knobs, IN USA - Monday, August 7, 2006 8:04 AM CDT
Heidi and Paul, I wanted to drop by to see how you were both doing. Heidi, I hope things are going well at Spaulding and that you will be home soon. I am keeping you and your family in my thoughts and prayers.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Sunday, August 6, 2006 3:05 AM CDT
Hey Paul and heidi,
It is the vanc monster lol! Paul I talked to Heidi on im about 5 and she said she had a bad headache too. So hopefully she was ust worn out. I have to tell you this story when we next talk
pam(www.pamsstory.org) <sylteach@aol.com>
- Saturday, August 5, 2006 3:47 AM CDT
Heidi & Paul: Just think of the clothing issue's she will be giving you in a few more years. I certainly hope that she changed her mind and left the jeans at home during the rest of the hot days this week.
Happy to hear that Nick did okay at camp.
Heidi: Hope you are out of camp soon so you can get home and get some rest!! You never get a break there.
Kerry, Hailey & Brenna
Plymouth, MA - Friday, August 4, 2006 8:59 PM CDT
Heidi,
Keep them on their toes at Spaulding and I do hope you'll be home very soon.
Dawn <dawnand3dogs@charter.net>
- Friday, August 4, 2006 6:53 AM CDT
Hi Heidi and Paul,
I am glad that Heidi is now at Spaulding, one step closer to coming home. Thanks so much for your updates. I hope that Heidi is comfortable and that you can address the fluid problem with them when you get there. I wonder why they took her off her TPN and put her on D10 only. Let us know why when you find out, okay?
Thinking of you Heidi and praying for a speedy recovery so that you can get out of there soon and back into her own home, where it is so much more comfortable. I will call you tomorrow. I had a endo appt. on Wed. and slept all day today(Thursday). Love you!! God Bless you my friend.
Love and Hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, August 4, 2006 0:07 AM CDT
Hello,
Thank you so much for the Update. Wonderful to hear that Heidi is getting settled in. I will be praying for Safe trips back and forth.
God Bless
www.elisangels.org
Ann "Angel Eli's Mommy" <akurtz1974@msn.com>
Brighton, CO USA - Thursday, August 3, 2006 4:37 PM CDT
Hi Paul and Heidi,
Sounds like Heidi is back fully in charge and ready to take on the world. That is wonderful! I'm glad Heidi's sense of humor has come back in full swing, good health will follow! I'm with Nick, a computer and good air conditioning does a lot to make for a good summer. I hope Kaitie really enjoys her Girl Scout camp, certainly was a favorite for me at her age. (At my girl scout camp the favorite skill they taught us was making campfires with several different arrangements of the sticks, crisscross, teepee style, and other things. I spent every evening at home building fires in the back yard with my dad standing by with the garden hose. I hope that firebuilding is no longer the primary camp curriculum!!!). Take care, Heidi, I hope the stay at Spaulding is short and yields some very good results.
Dawn <dawnand3dogs@charter.net>
- Monday, July 31, 2006 7:30 AM CDT
Paul,
TY for the updates. Hope you were able to find a sitter the other night tho I liked my solution of tieing the kids up in a closet at work lol. Hope things continue to go well. And Ms. Heidi- I know you were envious of my Vanc since I see you got someof your own now. Tried to call you but no answer so I hope you were behaving.
pam(www.pamsstory.org) <sylteach@aol.com>
- Sunday, July 30, 2006 9:38 PM CDT
Heidi and Paul, I just wanted to let you know I am thinking of you both as Heidi recovers from surgery. I am so glad she was able to get off the breathing tube right away. Praying for an easy recovery.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Sunday, July 30, 2006 3:54 AM CDT
Hi Heidi and Paul,
Thanks for the update!! Heidi you are in my thoughts and prayers daily. I am sorry I missed your call. I am sure we will hook up again this weekend. I hope your pain is getting less and less as the days go by. Glad you were able to get your muscle biopsy done at the same time your gall bladder came out. Remember to keep those Nurses on their Toes!! Keeping you in my prayers!!
Love ya!!
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, July 29, 2006 10:24 PM CDT
AMT makes a latex free j tube button. Sean had one for a little while.
Shelly
rawlinsfamily.typepad.com/rawlins_rainbows caringbridge.org/visit/rawlinsboys <mom24wildboys@sbcglobal.net>
Glendale, CA - Friday, July 28, 2006 11:46 PM CDT
Hi Heidi and Paul,
Sounds like very good news in terms of the recovery, things are coming along very well given all the challenges that mito presents. I'm glad the pain is under control at least, and that Heidi has such good doctors taking care of her. Praying for a continued good recovery and that Heidi will be well enough to be home very soon.
Dawn <dawnand3dogs@charter.net>
- Friday, July 28, 2006 6:09 AM CDT
Hi Paul,
Thanks for the update. I think you are probably right about the possibility that the doctors will find something wrong with the gallbladder after all, considering all the stuff that was draining out of it! How could it be perfectly normal? Anyway, SO sorry that Heidi is having a rough time of it right now with all the pain. I hope the pain will be lessening soon so they can reduce the meds. Keep us posted. Sounds like a rough week. I'm glad the kids have been with their grandparents so you could be there just for Heidi. Take care.
Dawn <dawnand3dogs@charter.net>
- Tuesday, July 25, 2006 9:48 PM CDT
Praying that the surgery goes smoothly.
Angela,Alison and Heather Grace <alisonheathersmama@gmail.com>
Ma - Tuesday, July 25, 2006 8:38 AM CDT
Hey! I am praying that surgery went well and Heidi's 4 am worry was unheeded. I hope Mr. Papa aka Paul will update the site or at least im me(hint hint) as to how you are. I will try and call you after a day or so or when I hear how you are. I hope you guys were able to order some of the Boost Breeze from Walgreens.com. TTYS!
pam(www.pamsstory.org) <sylteach@aol.com>
- Monday, July 24, 2006 11:53 PM CDT
You have been in our prayers all day. I hope the surgery went well. Please keep us posted as to how Heidi is doing.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky US - Monday, July 24, 2006 5:15 PM CDT
I have been thinking of you recently so it was good to hear a message from your hubby. I wish words could heal but I know that isn't the case, so please know I am praying for you and always open to a call if possible. Keep fighting!
Darla Klein <honeybear50317@msn.com>
Des Moines, Iowa USa - Monday, July 24, 2006 3:33 PM CDT
Hi Paul,
Our family is praying for yours, especially through this next week. We were also disappointed that the Boost Breeze was taken off of the market, but while here in Maine (we're from AZ) I found a product called "Protein Water". [NVE Pharmaceuticals Stacker 2 Protein Water 12 Bottles (19.4oz each)
Stacker 2 Protein Water, with 20 grams of high quality protein in a great tasting water.] My daughter will drink the lemonade flavored one with lemon flavored pop (half and half). Also, the folks who created Bene-fiber have come up with a product called Bene-protein. I ordered through Walgreen's, and the powder can be added to just about anything. It's supposed to be tasteless, but I think there is a bit of taste that can be easily hidden in potatoes, eggs, or anything else.
Our best to you and your family,
Lyn
www.caringbridge.org/az/bonniemarie
Linda Marie Codier <lynmarieco@cox.net>
Mesa (currently Wells), AZ (ME) - Sunday, July 23, 2006 2:02 PM CDT
Hi Heidi,
Good luck tomorrow. I will be praying that everthing will go well. It sounds like all your doctors are onboard and I know they'll work together for you to make this as successful as possible. As you recover, please know we all will have you wrapped in prayers and good thoughts.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, July 23, 2006 11:54 AM CDT
Heidi and Paul,
I'm praying for a safe and successful surgery tomorrow. I hope you will have a smooth recovery. It has been a long time coming for the doctors to decide on the surgery, I know that God is granting them wisdom through all of this.
Dawn <dawnand3dogs@charter.net>
- Sunday, July 23, 2006 8:51 AM CDT
Paul and Heidi, My thoughts and prayers will definitely be with you and your family on Monday. Even though we have never met (but have been in Boston at the same time), your family has always been an inspiration to me. Thinking of you all.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
Cedar Rapids, IA - Sunday, July 23, 2006 8:37 AM CDT
Heidi & Family,
Sending thoughts and prayers your way, hoping surgery goes well and is followed by a speedy recovery. You have a beautiful family!
Kind Regards,
Colleen - Mom to Calley 8, Mito (Complex IV)
www.caringbridge.org/de/calley
Colleen <colrobi@aol.com>
Wilmington, DE - Sunday, July 23, 2006 7:11 AM CDT
I will be praying.
Sh <SheDeKold@aol.com>
Floyds Knobs, - Saturday, July 22, 2006 11:37 PM CDT
I'm thinking of you and your family, Heidi. I hope things go as smoothly as possible with your surgery and that better days are ahead.
Bridget Willis
Plymouth, MA USA - Saturday, July 22, 2006 2:50 PM CDT
My prayers are with you on Monday, Heidi. Praying for strength for your entire family and that God gives you a good surgeon, good nurses, and a great recovery.
Tammy <6gills@charter.net>
Louisville, TN 37777 - Friday, July 21, 2006 10:54 PM CDT
Hi Heidi and Paul,
I hope the surgery if planned and then over with quickly so Heidi doesn't have to worry about it any more. Sounds like Katie is being a typical kid! (Paul, just remember that you and Heidi were kids once upon a time, she must take after one or the other of you!!:) Anyway, thinking of you all and hoping you have a good week now that the heat wave has broken finally!
Dawn <dawnand3dogs@charter.net>
- Wednesday, July 19, 2006 5:50 AM CDT
Hi Heidi, Paul, Katie and Nick,
Heidi there is a new somewhat plan..i tell you next time we chat. Has Paul had to clean anymore carpet? Sorry Paul gotta pick on you for bit on that one. Tell both the kiddos hello and I will ttys.
pam(www.pamsstory.org) <sylteach@aol.com>
- Tuesday, July 18, 2006 9:43 PM CDT
Thinking of you guys today.
God Bless
Ann "Angel Eli's Mommy" <akurtz1974@msn.com>
Brighton, Co USA - Friday, July 7, 2006 4:33 PM CDT
Hi Heidi!
I just found your page and thought I'd say hi! Hope you feel better!
With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW
Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, July 4, 2006 10:20 PM CDT
Hi Heidi and Paul,
It was great talking to you last night. Sorry Heidi put you to work and snagged the keyboard Paul lol! I have some extra of the good juice if you would like some. It was yummmmy! I hope you guys have a great 4th.
Hosted by Sparkle Tags
Pam(www.pamsstory.org) <sylteach@aol.com>
- Monday, July 3, 2006 4:19 PM CDT
Hi Heidi,
I am so happy to hear that you were able to see Katie perform her dance!! Sorry to hear that you were so very tired. I am glad that you got your new wheelchair and that the legs are really light, that will help when Paul pushes you around! Sorry Paul had to call 911, that must have scared him to death, or well almost anyway.
I hope that you are home soon and are able to enjoy a little cookout for the Holiday weekend. THinking about and keeping you in my prayers!!
Love and Hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, July 2, 2006 10:15 PM CDT
Hi Heidi,
I am so happy to hear that you were able to see Katie perform her dance!! Sorry to hear that you were so very tired. I am glad that you got your new wheelchair and that the legs are really light, that will help when Paul pushes you around! Sorry Paul had to call 911, that must have scared him to death, or well almost anyway.
I hope that you are home soon and are able to enjoy a little cookout for the Holiday weekend. THinking about and keeping you in my prayers!!
Love and Hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, July 2, 2006 10:06 PM CDT
Hi everyone: I was so happy to read Heidi that you got to see Katie's recital!!! I am sure she was beautiful and couldn't be happier to have both mom & dad there to see her.
Nick & Katie: How is your summer vacation going?
Thinking of you all and hoping that you are home in your own bed tonight Heidi!!
Love~ Kerry, Hailey & Brenna
Plymouth, MA - Sunday, July 2, 2006 8:56 PM CDT
Hi Heidi,
Let's hope they send you home in good health today. I imagine you are at Baystate or maybe Mercy Hospital? I hope they can learn more and more about mito so that you don't have to go to Boston so frequently if that would make it easier for the kids and Paul to visit.
As they say "never a dull moment", but here's hoping you can have some straightforward uneventful times for the rest of this weekend.
Dawn <dawnand3dogs@charter.net>
- Sunday, July 2, 2006 9:30 AM CDT
Hi Heidi and Paul,
Got your latest update from Darleen this morning. I hope that you are doing okay today. Things change so quickly, it must be majorly frustrating. Keep us posted.
Dawn <dawnand3dogs@Charter.net>
- Friday, June 30, 2006 4:27 PM CDT
Hi Heidi and Paul,
Thanks so much for the update!! And Heidi it was so nice talking to you the other night. I love when we chat.!! I hope your surgery to remove your gall bladder goes well and you recover quickly. I think of you often and pray for you and your lovely family.
Stay cool, stay dry and enjoy your summer!! Keeping you and your family in my thoughts and prayers.
Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Thursday, June 29, 2006 8:36 PM CDT
Hi Heidi...Just wanted to stop in and let you know I have NOT forgotten. Seems someone had other plans for me for the last month. I hate it when that happens! I am sure you can understand. Please know that you are in my thoughts and prayers daily. I will call soon...
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, June 25, 2006 9:58 AM CDT
Praying for you guys and glad to hear that Heidi has had some good days.
Alex and MaryBeth
MaryBeth <attnymb@aol.com>
- Wednesday, June 21, 2006 7:09 PM CDT
Hi Heidi and Paul, I just wanted to drop by to say hi and to see how you were all doing. I know you met up with Heather and Malisa when we were all in Boston, but I was at nephrology at that time. I hope to be able to meet you during one of these trips. Heidi, I hope your doctors can decide whether to take out your gallbladder or not and hopefully give you some relief. Even though I have not met either of you, I have heard a lot about your family and I keep you all in my prayers.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
Cedar Rapids, IA - Wednesday, June 21, 2006 10:02 AM CDT
Hi Heidi,
I'm glad that Paul updated the site once again. I do hope that the doctors will get that gall bladder out and that it will bring about some good improvements for you. Will be waiting to hear more about your visits this week. Oh, and as I told Paul, the new minister at church is going to be great. I hope you can get the tapes of some of his sermons when he gets started, as his first one was funny and good and interesting.
Take care.
Dawn <dawnand3dogs@charter.net>
- Monday, June 19, 2006 4:50 PM CDT
Hi Heidi,
How are you doing? Haven't seen an update and am worried. I know Paul is busy, he has his hands full. I hope you are feeling better and are able to enjoy some of the beautiful weather you are having up there. It is so hot here in Pa. but it sure beats the RAIN!!
Just wanted to let you know that I am thinking of you and praying for you and your family. I hope everyone is well. Praying that you were able to get some more PCA hours as I know you desperately need them. Please know that I love you and think of you always!!
Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, June 17, 2006 0:34 AM CDT
Hi Heidi and Paul,
So glad to hear from you!! I was in Boston to see Dr. Korson as you know, and I really wish that my husband Kim and I had enough time to come and visit you both but it was a short trip. Lots of stuff going on with me and some changes and new doctors to see. I will update my CB page when I get a chance. I have to put a security password on my CB page now, due to family. Will it ever end??
Just wanted you both to know that I think of you and your family every day and pray for you all. When I pray to God I ask him to please give you the miracles you need to make it through and to please put some smooth road for you all to walk down instead of the rocky one that you now walk.
I love you both and wish I lived closer to help, not that I would be of much help but maybe just to keep Heidi company during the day. Remember you have so many friends that love you and pray for you every day. God Bless you and your family.
oh yeah I hope that Nick likes his new stroller and that he is able to enjoy more time outdoors doing fun kid stuff!!
Love and Hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, June 12, 2006 10:57 PM CDT
Glad to hear Heidi is home. The system (nursing and PCA hours) is so frustrating but I hope they approve them and you get the help you need. We think of you often and know your family is always in our prayers.
Love,
Heidi
Heidi Simoes <Lexicam24@cox.net http://www.caringbridge.org/fl/alexandria>
Johnston, RI USA - Friday, June 9, 2006 9:21 PM CDT
Just stopping by to say hi and let you know that I'm thinking of you. God bless and *warm hugs* ><>†<><
*Jennifer C* from Angels on Earth <coopsie78@gmail.com>
Eugene, OR USA - Friday, June 9, 2006 6:59 PM CDT
Hi Heidi and Paul,
Thanks Paul for updating your journal. I always look for an update. Sorry that Heidi is having trouble with her gallbladder. I hope the doctors decide what to do about that soon. Glad to hear that the kids are doing as well as can be. Sorry to hear that Katie is having allergy problems.
Coming up to Boston on Wednesday, and can't wait to see you guys!! I am all excited. Keeping your family in my prayers and thoughts.
Love and Hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, June 6, 2006 8:56 PM CDT
Hi Paul,
Thanks for the update. I hope Heidi gets home soon. Heidi, I hope the doctors figure out this gall bladder thing soon, whether it IS or IS NOT a problem. Sounds very confusing, but what about mito isn't confusing? The main point is that I hope they can get rid of the pain you are feeling at the moment and keep it from coming back. Nick told me he is excited about summer as he is going to help Katie get ready for second grade! Hmm... I wonder if he's planning to try to teach her the second grade curriculum? Sounds interesting... Anyway, take care and tell the doctors to get you home soon.
Dawn <dawnand3dogs@charter.net>
- Sunday, June 4, 2006 8:39 AM CDT
Alex is just stopping by to say that we are praying for you! Hope you have a great Memorial Day Weekend!
Love,
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Saturday, May 27, 2006 7:26 AM CDT
Hi Heidi, Paul said you are heading to Boston. Don't let them keep you there too long. Hope you'll have a very short stay this time.
Dawn <dawnand3dogs@charter.net>
- Wednesday, May 24, 2006 5:24 AM CDT
Hi Heidi,
Hoping you'll have a good week ahead.
Dawn <dawnand3dogs@charter.net>
- Monday, May 22, 2006 5:38 AM CDT
Alex is just dropping by to say that he hopes you had a
So glad to hear that Heidi is home! I hope you are able to find PCA's quickly. They make such a huge difference.
Love, MaryBeth & Alex
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Monday, May 15, 2006 2:06 PM CDT
My Dear Friend,
Heidi,
So happy to hear that you are home from the hospital. I am glad you told them that you could do all the things they want you to do at the hospital at home, so you should be home!! You go girl!!
I wish you a wonderful and blessed Mother's Day. I know it will be a hard day to celebrate without your little Princess Heather but know that she loves you and misses you just as much as you love and miss her. She is forever watching over you.
Enjoy your special day with Nick, Katie and Paul. I am sure they have a great day planned for you. I pray that your health stays stable, and that you can stay home for a long time.
I love You,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, May 14, 2006 6:44 PM CDT
LETTING YOU KNOW THAT YOUR THOUGHT OF ON MOTHER'S DAY.KEEPING YOU IN MY THOUGHTS AND IN MY PRAYER'S ALWAYS.
A Mother's Day Wish From Heaven
Dear Mr. Hallmark,
I am writing to you from heaven, and though it must appear
A rather strange idea, I see everything from here.
I just popped in to visit, your stores to find a card
A card of love for my mother, as this day for her is hard.
There must be some mistake I thought, every card you could imagine
Except I could not find a card, from a child who lives in heaven.
She is still a mother too, no matter where I reside
I had to leave, she understands, but oh the tears she’s cried.
I thought that if I wrote you, that you would come to know
That though I live in heaven now, I still love my mother so.
She talks with me, and dreams with me; we still share laughter too,
Memories our way of speaking now, would you see what you could do?
My mother carries me in her heart, her tears she hides from sight.
She writes poems to honor me, sometimes far into the night
She plants flowers in my garden, there my living memory dwells
She writes to other grieving parents, trying to ease their pain as well.
So you see Mr. Hallmark, though I no longer live on earth
I must find a way, to remind her of her wondrous worth
She needs to be honored, and remembered too
Just as the children of earth will do.
Thank you Mr. Hallmark, I know you’ll do your best
I have done all I can do; to you I’ll leave the rest.
Find a way to tell her, how much she means to me
Until I can do it for myself, when she joins me in eternity.a
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON ,ALBERTA
, - Sunday, May 14, 2006 1:37 AM CDT
Actually Heidi, I told Margaret I thought you would be more like a sprinkler system if I put water down your throat! But I like the octopus image too...
I am going to miss spending time with you on 8N...but I am so glad you are home with the family....its purely selfsh of me to miss our play times while I am in Boston...I hope you have an amazing mommy's day with nick and katie...I am positive this is the best gift you could have given them! And in return I know you are going to be given a super special mommy's day as well. I am going to pray that you can soak up all the peace, health and love your body can possibly handle, and be home for as long as possible.
I love you!!
Donna Thorell <iluvdizney2@adelphia.net (www.caringbridge.org/ma/thorell_kids)>
carver, Ma - Friday, May 12, 2006 7:30 AM CDT
Hooray, Heidi, you are home!!! I hope the PCA hours get filled with no problem!! Have a good day.
Dawn <dawnand3dogs@charter.net>
- Friday, May 12, 2006 5:50 AM CDT
Welcome Home Heidi!!! Heidi~ I have been thinking of you a lot as this will be your 1st Mothers Day without your sweet little Heather. I am happy that you will be able to be home with your family and not in the hospital. Hugs to you all as you have been through so much in these past months.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Thursday, May 11, 2006 6:25 PM CDT
Heidi,
I hope that T tube to drain your gallbladder went in ok and they didnt put in a latex version of that tubelike with the other tube. Hopefully it is a step closer to home.
pam(www.pamsstory.org) <sylteach@aol.com>
- Wednesday, May 10, 2006 6:05 PM CDT
Hi Heidi,
So upset to hear that the doctors messed up and put a Latex J tube in. Don't they read the charts and look at our bracelets.... aarrgghh!!
I hope you are feeling better and that you will be home soon. I think of you and pray for you everyday. Hope all is well with the kids. And Paul thanks so much for taking the time to update all of us on Heidi, and I know you don't have extra time on your hands with all that you are doing. We all love her so very much.
God Bless You all
Love and Hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, May 9, 2006 11:51 PM CDT
Heidi,
May this week bring you home, or at least closer to being home. I have some words for the doctors who put a latex tube in by mistake (but they can't be printed here!). Thinking of you and hoping you can leave the hospital very very soon.
Dawn <Dawnand3dogs@charter.net>
- Monday, May 8, 2006 6:59 AM CDT
Hello--
I've been thinking about you a lot and praying too--wanted YOU to know that as well. Please let Heidi know that I am thinking of her--
Sheila DeKold <shedekold@aol.com>
FLOYDS KNOBS, IN - Friday, May 5, 2006 11:42 PM CDT
Dear Heidi,
I hope you had a better week this week and that all planned was accomplished without a problem. I am thinking of you and praying... Thanks for keeping the journal up to date Paul.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, May 5, 2006 3:36 PM CDT
Thanks for the update on Heidi. It saddens me to see a doctor treat someone that way. Actually it kind of maddens me. I will be praying for all of you. i droppped you an email as wel.
pam(www.pamsstory.org) <sylteach@aol.com>
- Sunday, April 30, 2006 2:29 PM CDT
Hi Paul,
Thanks for the update on Heidi, I am so sorry that she is now facing more time in the hospital and then rehab. After all she has gone through with her j tube I can't believe the hospital staff fails to crush the pills properly. That seems so needless! and it causes so much trouble!!! I'm glad you will get to Boston this week to visit, I'm sure Heidi must be very discouraged about another trip to rehab. I hope it will help her gain some strength. Say hi to Heidi and Nick and Kaitie.
Dawn <dawnand3dogs@charter.net>
- Saturday, April 29, 2006 4:49 PM CDT
Paul: Thank you for the update. I am very sad to read it. I know there is a lot going on with Heidi, but it makes me so angry that some of the medical staff is not treating her with care. I guess the adult side has not seem as much of Dr. K as the pedi side. As I told you on the phone it is also upsetting to be at the same hospital as Heidi, but not being able to stop by and say hello or be able to help her in some why. That is the last thing she needed last week was Hailey's cold or my stomach virus.
I will talk to you soon Paul. Hope the kids are feeling better.
Love~ Kerry, Hailey & Brenna
Plymouth, MA - Saturday, April 29, 2006 4:21 PM CDT
Alex is peeking in to see how you are! So sorry to hear that Heidi has not been well. We will be praying for you all.
Love, MaryBeth & Alex
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Friday, April 28, 2006 9:38 PM CDT
Hi Heidi and Paul,
Sorry to hear that everyone has that nasty cold and I hope that you all get better soon. And Paul I hope your cold doesn't last as long as the kids cold.
I am so upset to hear that Heidi isn't doing well. Those J tubes are a real problem for me too!! I have had 5 J tubes placed in 7 months due to the inside tube rolling around inside and causing tons of trouble. I finally had Enough and had my J tube pulled. I feel 100% better!! No more pain, cramping or spasms!! I hope Heidi's new J tube works and won't give her anymore problems.
Those seizures are scarey, especially when you first witness them. Paul it was probably a blessing that you knew what was happening and knew what to do for Heidi during her seizure.
I certainly hope the social worker can somehow arrange for more nursing hours for Heidi, she so deserves them.
Please know that I am thinking of you all and keeping you in my prayers. I wish I lived closer to you guys, I certainly would do whatever I could to help out.
Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, April 25, 2006 0:12 AM CDT
Hi Paul and Heidi,
I'm sorry to hear of all the new complications. I do hope the new J tube will function properly. The health care system around here certainly isn't designed to help adults get nursing care at home, but I hope that there will be a way to get some nursing somehow as it would certainly be helpful for Heidi right now. Hang in there, we will all keep praying.
Dawn <dawnand3dogs@charter.net>
- Sunday, April 23, 2006 8:10 PM CDT
Hi:
I know I have told you both before, but I really don't understand either how they don't give Heidi nursing hours. I hope that the social worker will be able to help out. Sorry to hear you all have the nasty cold that is going around, but can't believe you have it for so long. I guess April vacation wasn't to fun.
Love ~ Kerry
Plymouth, MA - Sunday, April 23, 2006 3:40 PM CDT
Hi Paul and Heidi,
I hope you've had a great week having the kids home on vacation. If anyone can make a person smile it is your two great kids!
Dawn <dawnand3dogs@charter.net>
- Friday, April 21, 2006 6:00 AM CDT
Thinking of you and praying all is well... Sending love.
Kristi <patzman.2@wright.edu>
- Monday, April 17, 2006 3:35 PM CDT
Angel Katelyn’s Mum, Debbie < miraclegirl101@hotmail.com>
Wheatley, Ontario, - Saturday, April 15, 2006 10:11 PM CDT
Heidi, Paul and Family,
wishing your family a Happy Easter!!
And make sure the kids go to bed early or the Easter Bunny
won't stop at the house and fill their baskets!!
"He has risen, just like he said he would"
Love and Hugs,
Ann-Marie and Kim
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, April 15, 2006 8:17 PM CDT
Just wanting to wish you a Happy Day! May your Easter be joyous-filled with laughter, mirth, humor and a celebration of all life's zillion tiny, amazing gifts of unexpected beauty and intricate detail that puts us in awe of the Creator of it all. May your souls be refreshed and you hearts glad to be alive. Easter Blessings,
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Saturday, April 15, 2006 10:04 AM CDT
Heidi and Paul and Nick and Kaitlin,
Hope you have a very nice Easter holiday together. I hope everyone is doing okay. Enjoy school vacation also!
Dawn <dawnand3dogs@charter.net>
- Thursday, April 13, 2006 3:07 PM CDT
Keeping you in my thoughts and in my prayer's always.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON
, - Thursday, April 13, 2006 0:16 AM CDT
Your family is in our thoughts & prayers. Take care.
Lauren & Emma <markhamfamily@msn.com>
- Tuesday, April 11, 2006 3:36 PM CDT
HI Heidi,
I read this on a poster at our local Children's Hospital and thought of everyone living with the mito beast.
You have the strength to beat this,
You have the will to fight,
You have to win this battle,
You have a goal in sight.
You sometimes lose your balance,
You won't always feel your best,
You do what your doctors ask of you,
You let them do the rest.
You hold on to happy times,
You push the rest aside,
You smile and let the Lord lead you,
You know He is your guide!
In the book of Philippians 4:13 the Bible says, "I can do everything through him who gives me strength".
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Monday, April 10, 2006 1:05 PM CDT
Hi Heidi, Hope this week finds you basking in the sun, relaxing with your family and letting go of all the crud you've been through in recent months. You deserve a break, and if you can't take a vacation you can at least take a mental one.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, April 9, 2006 9:48 AM CDT
Hi Paul and Heidi,
I hope Nick and Kaitie are keeping you smiling with their silly kid antics. I hope Heidi's health is stable this week. Thinking of you all,
Dawn <dawnand3dogs@charter.net>
- Friday, April 7, 2006 6:24 AM CDT
Hi Heidi and Paul, Nick and Kaitie,
Thinking of you, hope you will have a good week ahead.
Dawn <dawnand3dogs@charter.net>
- Monday, April 3, 2006 6:20 AM CDT
Hi Heidi...hello Paul,
Just wanted to stop in and let you know that you've been on my mind. Thanks for the update Paul. Progression is such a nasty word... I think it should be considered one of those foul 4-letter words. I'm here if you need to talk.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, April 1, 2006 8:23 AM CST
Just popping in to wish you a sun shiny day!
Love, MaryBeth & Alex
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Friday, March 31, 2006 8:58 PM CST
Hi Heidi and Paul,
I hope you are having some nice time together as a family with Heidi home (and school vacation coming soon so the kids can enjoy some time hanging out at home too!). I hope the spring weather (finally!) is lifting your spirits. Praying for you all.
Dawn <dawnand3dogs@charter.net>
- Wednesday, March 29, 2006 8:01 PM CST
Paul--
Forgive me for not signing in earlier. I think of your family so much and do not let YOU know that I am. I do not like when folks do that to us. We need to tell people we care; it may be the only kind of support we can offer.
I wanted to thank you for your candid report--your loving support to your family is inspirational.
Please let Heidi know that I am thinking of her and will say a prayer for the UTI to GO AWAY!
How are the children holding up?
Trying to keep things eternally based,
Sheila DeKold (tpnsupport) <SHedeKold@aol.com>
Floyds Knobs, IN USA - Wednesday, March 29, 2006 5:24 PM CST
Paul and Heidi, I am so honored to be your friend....
Heidi...you are so much like my family..I love the fact I have been able to go through the waits with you, and the tests with you. I hope you realize just how special you are...I would not change a moment that I have shared with you...even sitting in O.R pre-ops is fun with a friend! ER's are not the same with out you either...sign language was interesting! You seem to keep me on my toes...but in fact you have given me a precious gift of your friendship and the gift of extended family. Love to you all!
Donna Thorell <iluvdizney2@adelphia.net <www.caringbridge.org/ma/thorell_kids>>
- Tuesday, March 28, 2006 9:52 PM CST
Keeping you in my thoughts and in my prayer's always.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca ~THE PRAYER BEARS~>
EDMONTON
, - Tuesday, March 28, 2006 4:57 PM CST
Paul and Heidi - Just want you to know you are in our thoughts and prayers.
Carolyn Thomas <momt6@localnet.com>
Centerville, MA USA - Monday, March 27, 2006 9:40 PM CST
Heidi I'm gald to hear you are home. I think of you all often and keep updated. Thinking of you all.
Heidi and Lexi
Heidi Simoes <Lexicam24@cox.net>
Johnston, RI USA - Sunday, March 26, 2006 7:34 PM CST
Hi everyone! Checking in to say hello and see how everyone is. Think of you all each day.
Kerry, Hailey & Brenna
Plymouth, MA - Friday, March 24, 2006 6:15 PM CST
Just letting you all know I luv ya and I am so glad you guys are all home together right now.....Heidi...dont forget Zevex and coffee could work! LOL...
somedays I sit back and think what life would be like had you not entered in. I know my answer...in many ways it would be a empty in one area. It has been nothing short of an honor to be your friend and to care for you, and about you, like I have. Luv you so much!
Donna Thorell <iluvdizney2@adelphia.net <www.caringbridge.org/ma/thorell_kids>>
- Tuesday, March 21, 2006 7:06 PM CST
Heidi, I hope you can come home very soon. Paul and Nick and Kaitlin, hang in there. Hope this week will be better for everyone and Heidi can get home and relax for a change.
Dawn <dawnand3dogs@charter.net>
- Saturday, March 18, 2006 8:17 PM CST
Keeping you all in my thoughts and prayers. If you need anything, you can always give me a shout. I am pretty close to the hospital.
Angela(Heather Grace's mom) <alisonheathersmama@gmail.com>
Natick, Ma - Friday, March 17, 2006 12:46 AM CST
I'm glad things are looking up for your family. Perhaps a little angel named Heather has God wrapped around her finger and is making sure her Mama is ok. I think of all of you often.
Anne - Zach and Sam's Mom
Waukesha, WI - Monday, March 13, 2006 8:59 PM CST
Glad to hear Heidi will be home soon. We have been thinking about her and your family. Next time you all get down the Cape give us a ring.
Erin, Charlie, Will & Andrew Maclean <charlieerinwill2@msn.com>
Sandwich, MA USA - Monday, March 13, 2006 7:07 PM CST
Hope Heidi comes home soon! You are all in our thoughts and prayers.
Heidi Simoes <Lexicam24@cox.net http://www.caringbridge.org/fl/alexandria>
Johnston, RI USA - Monday, March 13, 2006 6:31 PM CST
Well I will be seeing Heidi on monday while I am there. I am sorry things have been pushed out a day....but glad they will look into why this is happening.
Keep in touch!
Donna Thorell <iluvdizney2@adelphia.net <www.caringbridge.org/ma/thorell_kids>>
- Sunday, March 12, 2006 9:36 PM CST
Hi Heidi, I'm so sorry you are being mis-treated in Club Med! It really makes me angry when stuff like that happens. Those nurses have absolutely NO CLUE how significant those issues are for us mitoers...they just don't get it. I'm storming the heavens for you and your family that you will find peace, rest and restoration and soon be home in your own space with loved ones!
Love and Hugs,
Kristie <kristiep@frontiernet.net>
Mercersburg, PA USA - Sunday, March 12, 2006 9:29 AM CST
Sorry, to hear Heidi is not getting the best care. Hope the kids are doing well and can get out in the warm weather this weekend.
Kerry, Hailey & Brenna
Plymouth, MA - Friday, March 10, 2006 1:02 PM CST
Paul, thanks for the update and I am praying for Heidi and some stability with her health. I hope that the care will improve soon at the hospital, she wouldn't be there unless absolutely necessary so I do hope they will be able to do as much testing and problem solving as possible to get this latest problem solved. Thanks for the updates.
Dawn <dawnand3dogs@charter.net>
- Friday, March 10, 2006 5:43 AM CST
I was there and heard the resident talking DOWN to Heidi. I was furious. I tried to intervene where I could and hopefully was able to make a difference last night. Paul, Heidi and kids, I am so sorry for all you are going through. At some point there needs to be rest for you all. I am praying strongly for this moment for you ALL. Heidi is like my sister and I love her dearly. We have been through a lot together. I would do it all again if needed, and she knows that. I hope you know I am praying for all of you everyday!!!
Donna Thorell <iluvdizney2@adelphia.net <www.caringbridge.org/ma/thorell_kids>>
- Thursday, March 9, 2006 8:29 PM CST
Just stopping by to say that we are praying for you!
Love, MaryBeth & Alex
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Sunday, March 5, 2006 3:32 PM CST
Heidi, Just letting you know I am thinking of you and miss you lots! hope all is getting better and stronger. you need to visit as soon as the addition is complete!!
Donna Thorell <iluvdizney2@adelphia.net <www.caringbridge.org/ma/thorell_kids>>
- Sunday, February 26, 2006 1:01 PM CST
Alex and Cookie Monster are stopping by to check on you.Hugs to you all! Hope you had a good Valentines day.
Love, MaryBeth & Alex
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Sunday, February 19, 2006 5:31 PM CST
Hugs and oodles of prayers!
Love
Mary, Mike Slade and the kids <mar-e@rogers.com>
Guelph, Ontario, Canada - Sunday, February 19, 2006 2:13 PM CST
Hooray, glad that Heidi is home again! The kids must be thrilled and I'm sure Heidi is so glad to be back, and it sounds like with good results from the stay in rehab. Thanks for the update, Paul!
Dawn <dawnand3dogs@charter.net>
- Sunday, February 19, 2006 11:13 AM CST
You family is in my thoughts and prayers.
Jill
- Thursday, February 16, 2006 2:11 PM CST
LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Tuesday, February 14, 2006 5:59 PM CST
Hugs and oodles of prayers!
Love
Mary, Mike Slade and the kids <mar-e@rogers.com>
Guelph, Ontario, Canada - Wednesday, February 8, 2006 6:19 AM CST
Hugs and oodles of prayers!
Love
Mary, Mike Slade and the kids <mar-e@rogers.com>
Guelph, Ontario, Canada - Wednesday, February 1, 2006 8:59 AM CST
Just stopping by to say that we are praying for you and keeping Heather in our hearts! I hope that all is well.
Love, MaryBeth & Alex
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Saturday, January 28, 2006 6:22 PM CST
Alex is swimming by to say hello!Thinking about you guys and praying that all is well!
Love, MaryBeth & Alex
The Prayer Bears Website
MaryBeth <attnymb@aol.com>
- Sunday, January 22, 2006 1:39 PM CST
Hey everyone. Go Broncos!
Visit Elijah's Page
Ann "Angel Eli's Mommy" <akurtz1974@msn.com>
Brighton, Co USA - Sunday, January 22, 2006 1:19 PM CST
Hi Heidi & Paul
I am so happy to hear that you had a great trip to Flordia. I was at NEMC today heard you were at MGH. Hope everthing is ok. I need to talk to you about permnant J tubes. Look like our next option. I hope all is well with your family. Love to you all
Erin MacLean <charlieerinwill2@msn.com>
Sandwich, MA USA - Friday, January 20, 2006 3:45 PM CST
Hi Heidi,
I hope things are going well for you. And I hope your trip to Boston this week is a short one. I am thinking about you and am waiting for your information. Have Paul send it to my email addy if you don't have the time. Praying for you and your family. Keeping you close to my heart and i hope the surgery goes well. Love and hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, January 18, 2006 8:15 PM CST
Heidi,
Hoping your upcoming stay in Boston will be no longer than predicted and that all will go smoothly.
Dawn <dawnand3dogs@charter.net>
- Monday, January 16, 2006 6:40 AM CST
I found your site on Eli's Angels. I plan to check in frequently. I'm so sorry to hear of the loss of your precious daughter Heather. We lost our son Adam to an unknown mitochondrial disease two years ago. He was just 4 months old. We would have done anything to have him with us just a little bit longer, but he knew that it was the right time. His site is a caringbridge one: /ma/bundle (username: together, password: forever.) I still update it from time to time and I certainly check it everyday. My living son and I probably have mild mito at this point. Hope Heidi is doing well.
Liz <eneprice@comcast.net>
Wayland, MA - Saturday, January 14, 2006 7:32 PM CST
LOVE ALWAYS BRENDA MY LOVING DAD FOREVER MY CHRISTMAS ANGEL <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Friday, January 13, 2006 0:40 AM CST
Thinking of you all. I hope Heidi feels better soon.
Angela -Heather's site
<alisonheathersmama@gmail.com>
Natick, Ma - Friday, January 6, 2006 11:24 AM CST
Hi Heidi,
Just wanted to let you know that I've been thinking about you. I'm sorry you are having line issues. I hope the new one has fewer problems and that you can settle in at home with the kids for a regular routine for a while. Many prayers coming your way in 2006!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Tuesday, January 3, 2006 6:14 PM CST
Wow, you've all been busy. Wednesday sounds like a great day for Heidi to come home, especially since it might be the only day of the week that there's no snow in the forcast! The kids may very well have a snow day Tuesday, I hope not as we'll all be going to school forever with all the snow days, two already and the winter hasn't even really started??? Heidi, hang in there and get home soon. I hope the new line will last for a long time and not give you any problems. Those lines are incredibly fussy things. Safe traveling on your trip home from Boston, and may 2006 bring stable health and unforseen blessings!
Dawn <dawnand3dogs@charter.net>
- Monday, January 2, 2006 7:39 AM CST
Wishing you and those you love
a year of good health, happiness, contentment and peace
Love, MaryBeth, Scott, Carolee, Spencer & Alex
MaryBeth <attnymb@aol.com>
- Saturday, December 31, 2005 7:43 AM CST
Thanks for the update,Paul. Your job sounds like something just made for you, what a blessing for those kids in the nursing home to have you for a CNA. I hope Heidi's line gets straightened out so she won't have to make any more trips to Boston soon. Glad that Nick and Katie are healthy. I think of your family often. I know Christmas must have been unbearably hard. I hope this coming year will bring some sunshine amidst the clouds for all of you.
Dawn <dawnand3dogs@charter.net>
- Thursday, December 29, 2005 6:29 AM CST
Hey! Heidi I am sorry bout your line...i know it has been hard. I am praying for you!
pam(www.pamsstory.org) <sylteach@aol.com>
nc - Wednesday, December 28, 2005 1:35 AM CST
Thinking of you everyday as always. Heather and Eli had the best Christmas ever, with Jesus but that doesn't stop the missing them. Hoping you catch up with things soon. Never lose faith.
Kristi, Media Donation Manager, www.elisangels.org <Patzman.2@wright.edu OR kristimarie2007@aol.com>
- Monday, December 26, 2005 11:27 PM CST
Thanks for the update Paul. I know you all miss Heather so much. I am so sorry she is not here for you to see but I trust she is in your heart and always with you.
Anne - Sammy (in heaven) and Zach's Mama_www.caringbridge.org/wi/zachsam
- Monday, December 26, 2005 8:02 PM CST
Christmas Without You
The lights are blinking merrily
The tinsel’s on the tree
It sits there in the window
For all the world to see.
The house is filled with holly
And pinecone scents the air
The Christmas cards keep coming
Each one is hung with care.
The gifts are tied with ribbons red
And topped with pretty bows
I’m done with all the details
As far as Christmas goes.
The fire is softly glowing
I think about your touch
But Christmas isn’t Christmas
I miss you oh, so much.
If I could have just anything
My Christmas wish would be
To wake up in the morning
And find you here with me.
Staring at your picture
I long to be set free
Tonight the tears are streaming
As I hold it next to me.
Flakes of snow swirl through the air
I’m braced for stormy weather
I wait for brighter days ahead
When we can be together.
So hold a place in heaven
Someday when life is through
I’ll be the Christmas angel
Who shares this day with you.
MY CHRISTMAS ANGEL
LOVE ALWAYS BRENDA <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Sunday, December 25, 2005 4:23 PM CST
Heidi, Paul and family........
Thinking of you on this Holiday.........
Diane
NY - Saturday, December 24, 2005 11:13 PM CST
Merry Christmas
Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com>
Wheatley, Ontario, - Saturday, December 24, 2005 11:11 PM CST
What a blessing, Heather gets to celebrate Christ's birthday with Christ himself, that is going to be one heck of a party. We are keeping you in our prayers often.
sandra and joshua kilpatrick <kilpatrickfamily@earthlink.net www.caringbridge.org/fl/joshuakilpatrick>
leesburg , fl usa - Saturday, December 24, 2005 11:48 AM CST
Sending Christmas wishes and blessings... May 2006 be a better year for you...
Kristi, Media Donation Manager, www.elisangels.org <Patzman.2@wright.edu OR kristimarie2007@aol.com>
- Friday, December 23, 2005 4:34 PM CST
MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Friday, December 23, 2005 6:46 AM CST
Hi Paul and Heidi,
Hope you all enjoyed Disney! Nick says it was "very wonderful". This New England weather is another story. Thinking of you during this holiday season.
Dawn <dawnand3dogs@charter.net>
- Monday, December 19, 2005 4:06 PM CST
Alex and Holly are riding by to wish you a very MERRY CHRISTMAS!
MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Sunday, December 18, 2005 7:25 AM CST
Thinking of you and sending you some cyber Hugs.
Angela~www.caringbridge.org/ma/heathergrace
Natick, Ma - Thursday, December 15, 2005 6:48 PM CST
I know it's been like forever since I've visited you.
I have just been so busy.
But I think of you always.
My First Christmas in Heaven
I see the countless Christmas trees,
Around the world below,
With tiny lights like Heaven’s stars
Reflecting on the snow.
The sight is so spectacular,
Please wipe away that tear,
For I’m spending Christmas,
With Jesus Christ this year.
I hear the many Christmas songs,
That people hold so dear,
But the sounds of music don’t compare,
With the Christmas choir up here.
I have no words to tell you,
The joy their voices bring,
For it is beyond description,
To hear the angels sing.
I know how much you miss me,
I see the pain inside your heart,
But I am not so far away,
We really aren’t apart.
So be happy for me, dear ones,
You know I hold you dear
And be glad I’m spending Christmas,
With Jesus Christ this year.
I send you each a special gift,
From the heavenly home above,
I send you each a memory,
Of my undying love.
After all “Love” is a gift,
More precious than pure gold,
It was always most important,
In the stories Jesus told.
Please love and keep each other,
As my heavenly father said to do,
For I can’t count the blessings of love,
He has for each of you.
So have a Merry Christmas,
And wipe away that tear,
Remember, I’m spending Christmas,
With Jesus Christ this year.
LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Wednesday, December 7, 2005 11:53 PM CST
Hi Heidi and Paul,
Nick and Kaitie must be getting VERY excited about the trip. I imagine it will be hard to concentrate on anything else this week! I'm glad they get to enjoy all the happy anticipation of the trip as well as the trip itself! It will be GREAT to get away from this winter weather. Thinking of you, hoping your trip will be a lot of fun.
Dawn <dawnand3dogs@charter.net>
- Monday, December 5, 2005 6:58 AM CST
Hi you guys I just wanted to stop by and wish you happy Holidays. Since Elis passing it made me think of little Heather as well. So I thought I would come visit to see how things are coming along. My thoughts and prayers are with you. Take Care. Debbie Fogel
www.caringbridge.org/ca/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, Ca USA - Friday, December 2, 2005 9:40 PM CST
Hello: Hope you are getting excited about your trip. Remember please call us when you get to Disney (we are there 12/2 - 12/11), the girls & I will come hang out with Nick & Katie. Mom & Dad can grab some time alone if you would like. Can't wait to hear all about it and see pictures.
Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Thursday, December 1, 2005 7:29 PM CST
I hope you all have a good time at Disney. Thinking of you.
Angela -HEATHER GRACE
<alisonheathersmama@gmail.com>
natick, ma - Thursday, December 1, 2005 5:45 PM CST
Just wanted to stop in and say "God bless" and tell you that we are thinking about all of you. We hope you have a wonderful time at Disney!
www.caringbridge.org/ga/brettcochran
David, Lisa, Kent, Clay, and Brett Cochran
Suwanee, GA - Thursday, December 1, 2005 7:04 AM CST
Hi Paul,
Thanks for the update. You all have your hands full. I hope the trip to Disney is just PERFECT! Sounds like a much needed vacation and with any luck you'll have some wonderful weather down there to go with it.
Dawn <dawnand3dogs@charter.net>
- Wednesday, November 30, 2005 3:43 PM CST
Hi I am so sorry to hear of your loss. I too have lost a child. My son Louie was four years old when he passed on June 25, 2005. Only people that have suffered the loss of a child can understand what we are going through. Especially when our children have such a hard life. My son was a small bowel transplant patient who fought everyday of his life. I hope you can find a way to make it throught the holidays. My thought and prayers are with you and yours. God Bless
Georgia <georgia@gmarsh.com>
dravosburg, pa usa - Tuesday, November 29, 2005 7:31 PM CST
sending my thoughts and prayers to you.
www.caringbridge.org/ga/rheanacarter
heather <morh2gs@alltel.net>
- Tuesday, November 29, 2005 10:15 AM CST
I hope you were able to have a restful Turkey Day! I know things can be rough at times but I am sure God will not give you more than you can handle. Sorry I havent been by recently..been sick in club med and my computer crashed.
Pam(www.pamsstory.org) <sylteach@aol.com\>
nc - Tuesday, November 29, 2005 1:55 AM CST
Thinking of you guys so much lately, especially with Eli's passing. I imagine that at least the outpouring of love and condolences distracts you at first, but I cannot imagine the silent moments. Still lifting you up in prayer.
Love MaryBeth & Alex
www.caringbridge.com/vt/alex
MaryBeth <marybethlefevre@aol.com>
- Monday, November 28, 2005 7:34 PM CST
Heidi and Paul,
I haven't heard from you in a long time, I hope all is well. I worry about you. I hope the holiday wasn't too painful for you and that you were able to find something to be Thankful for. The Holidays are a very hard time of the year. I prayed and asked God to please give you the strength to make it through the coming holidays. Know that your family is prayed for daily. Heidi, give me a call. I miss you. Love and Hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, November 28, 2005 0:53 AM CST
I am so sorry for your loss. What a beautiful littlel girl.
www.myangelteagyn.bravehost.com
Nicola mummy to angel Teagyn <teagynsmum@aol.com>
virginia beach, va - Sunday, November 27, 2005 8:16 PM CST
Heather and Eli, two sweet angels in heaven... Just on because of learning of the death of sweet Elijah Jeramie and wanted to send my well wishes to you all being you are part of Eli's Angels. Heaven gained one beautiful angel, while we lost one beautiful angel and left our hearts broken.
Kristi <Patzman.2@wright.edu>
- Friday, November 25, 2005 10:15 PM CST
Dear Heidi, Paul and Family...it has been a while since we've heard from you. Hoping everyone is well and making it through this holiday season okay. Take care and know that there is an angel looking down upon you!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, November 25, 2005 6:59 PM CST
Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com>
Ontario, Canada, - Friday, November 25, 2005 1:08 AM CST
HI Heidi, Paul and Family,
You guys have been on my mind a lot lately. I hope and pray that everything is fine and that you Heidi are feeling better. Those line infections really do wipe you out both physically and mentally. I had one in the beginning of Oct and ended up in the hospital via ambulance. Praying for your family. I hope you all have a wonderful Thanksgiving. I know the upcoming holidays are going to be rough for you, but I pray that God will give you the strength to make it through them and hopefully you will even smile a little. Know that I keep you close to my heart. Love and Hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, November 20, 2005 11:36 PM CST
Happy Thanksgiving Heidi!
I finally found Heather's site. She is a cutie Angel. I am so sorry for your loss. We think of her and your family every day as we mix Sean's formula...
Always sending prayers of peace and comfort.
Shelly and Sean Rawlins caringbridge.org/ca/sean <mom24wildboys@charter.net>
Glendale, CA - Sunday, November 20, 2005 11:28 AM CST
Alex is riding by to say Hello and HAPPY THANKSGIVING!!!
MaryBeth & Alex
MaryBeth <attnymb@aol.com>
- Saturday, November 19, 2005 7:21 PM CST
I am going away from November 21-December 30 so I won't be online so I wanted to wish you a happy Thanksgiving and a Merry Christmas, may you have a truly wonderful day both days and a ton more wonderful days in between. My thoughts and prayers remain with you. I know your firsts without Heather will be hard but know you remain in my prayers and thoughts. Heidi, get well soon.
Love always,
Kristi
Media Donation Manager
www.elisangels.org
Kristi <KristiMarie2007@aol.com>
- Saturday, November 19, 2005 1:43 PM CST
Thinking of you all and remembering beautiful Heather.
Angela -HEATHER GRACE
a
natick, ma - Friday, November 18, 2005 8:53 PM CST
Hi Heidi & Paul & family
Wanted to let you know I have been thinking about you alot lately. I am hoping that Heidi is feeling better and that I will get to see you at some point. I hope the kids enjoyed Halloween. Thinking of you all.
Erin, Charlie, Andrew & Will MacLean www.caringbridge.org/ma/andymaclean <charlieerinwill2@msn.com>
Sandwich, MA USA - Friday, November 11, 2005 9:20 PM CST
hi! just wanted you to know that we think of your family often. we hope you are feeling better heidi, take care of yourself, and don't pick up a ticket for speeding in your power chair, ok!
jackie & joel & baby rafael www.caringbridge.org/visit/rafael <aeonflux4444@yahoo.com>
brooklyn, ny - Monday, November 7, 2005 11:41 AM CST
Alex and his friends are stopping by to say hope you have a great week!
MaryBeth & Alex
Prayer Bears
MaryBeth <attnymb@aol.com>
- Friday, November 4, 2005 6:18 PM CST
Dear Heidi, you, Paul, Nick and Katie are in our thoughts and prayers. So wish there were words of comfort and healing I could send to you. Praying your health improves. Sending you all cyber hugs and prayers for healing, and God's blessings. Thank you for the precious picture of Heather.
Love, LeeAnne, Allen, Lauren, Amanda, Matthew and Sammi, the Bye family in NJ
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Thursday, November 3, 2005 7:12 PM CST
LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, October 31, 2005 10:45 PM CST
Hi Heidi,
So you are back in Club Med, again....You must really like it in there.
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, October 31, 2005 10:37 PM CST
Hi Heidi,
Happy Halloween. Hope you are feeling better and get out of club med soon! Thinking of you often!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, October 31, 2005 7:52 PM CST
Yeah!!! I am the first to sign on Halloween!!! HAPPY HALLOWEEN!!! HOPE YOU HAVE A WONDEREFUL DAY!!! I know the first of many holidays is upon you and I pray that it is a blessed day. Heidi, take care of yourself.
CHECK OUT www.elisangels.org
Kristi <Kristimarie2007@aol.com>
- Monday, October 31, 2005 6:34 AM CST
Just stopping by to wish you a FRIGHTFULLY good Halloween!
Thinking of you all.
MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
- Sunday, October 30, 2005 4:10 PM CST
Wanted to say hello to you all & hope that you are feeling better Heidi. I have been thinking of you all a lot lately.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Saturday, October 29, 2005 9:29 PM CDT
So are you bored at the resort yet? They must be treating you well this time as you seem like you do not want to leave! I know... I know...I am hoping that you get better soon and we can get you back home to be with paul and kids. I am sure they all miss you tons. You have lots to accomplish in life and I know for a fact you havent even begun! So hoping this finds you feeling better and getting back to good health in order to go home. besides...You OWE me a girls day out! o ya, I won the bet....I get my Coolatta! It was not staph!!! it was yeast! score one for the kid!
Donna Thorell <iluvdizney2@adelphia.net <www.caringbridge.org/ma/thorell_kids>>
- Saturday, October 29, 2005 1:36 PM CDT
Heidi,
Club Med again? Did you really need the refresher course? Hope you make it home soon!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Thursday, October 27, 2005 8:13 PM CDT
Heidi, Sorry to hear you are inpatient, hope you will be back home very very soon!
Dawn <dawnand3dogs@charter.net>
- Thursday, October 27, 2005 4:19 PM CDT
Just checkin in on you guys. Your in my thoughts and prayers. www.caringbridge.org/visit/kathrynnill
nancy nill <nln1960@yahoo.com>
commack, ny - Tuesday, October 25, 2005 7:46 PM CDT
Heidi & Paul: Hope you had a safe trip home. Todays service was sad to say goodbye to Heather yet beautiful in the way you put it together. All the photo's of Heather were so be beautiful. They truly told a lot about her and showed a side that most of us who only saw her at the hospital didn't see all the time. Thinking of you all!
Love~ Kerry <kerry.tobin@verizon.net>
Plymouth, MA - Tuesday, October 25, 2005 7:33 PM CDT
Thinking of you all. I'm sure the service at NEMC will be beautiful.
Hugs,
Angela~ www.caringbridge.org/ma/heathergrace <alisonheathersmama@gmail.com>
- Tuesday, October 25, 2005 9:04 AM CDT
Alex and his scary mummy pumpkin are stopping by to wish you a bootiful week!I think of Heather every single day. I am praying for all of you.
MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
- Saturday, October 22, 2005 8:53 PM CDT
Hi Heidi and Paul,
I hope the upcoming service at NEMC, however very sad, will also be a comfort as you are able to once again see your NEMC "family" who has been such a part of your life through Heather's long illness. This is such a hard time of year to be grieving, it is always hard, but the days and days or rain and cold and darkness are extra difficult. I pray for all of the family as you go through this time, and hope for some sunny days to remind you of Heather watching over all of you from Heaven.
Dawn <dawnand3dogs@charter.net>
- Saturday, October 22, 2005 6:48 PM CDT
I am thinking of you all and hoping that your health is all staying stable. I think of Heather a great deal. Such an angel.
www.elisangels.org
Kristi <Kristimarie2007@aol.com>
- Saturday, October 22, 2005 6:36 PM CDT
Heidi and Paul, I am thinking a lot about you. I wish so muchj that you could be spared this pain. Take care of yourselves as best as you can.
Anne Juhlmann www.caringbridge.org/wi/zachsam <ajuhl@we.com>
- Friday, October 21, 2005 10:28 PM CDT
Just wanting you to know I cant get to sleep without letting you know we love you. Take care and stay rested as best you can. And Mr. Nick...you are ADORABLE...keep up the great work of keeping people smiling!
Donna & Rod Thorell and Tim too <iluvdizney2@adelphia.net <www.caringbridge.org/ma/thorell_kids>>
Carver, ma - Friday, October 21, 2005 8:19 PM CDT
I have been thinking of you all today. Hugs to Nick & Katie. Will see you all soon.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Thursday, October 20, 2005 2:04 PM CDT
Keeping you all in my prayers. I see Nick often, his smile just lights up my day. Heidi, I hope your health is stable.
Dawn <dawnand3dogs@charter.net>
- Wednesday, October 19, 2005 5:55 AM CDT
i love you heather. :'(....
nicholas <nickyboy1997@aol.com>
easthampton, ma usa - Monday, October 17, 2005 5:29 PM CDT
What a sweet prayer. Thinking of you and your family.
Hugs-
Ann Eide <AnnE02@cableone.net>
- Monday, October 17, 2005 0:12 AM CDT
Thinking about everyone today... hope you are feeling Heather smiling down on you.
Heather... F7M <hvallatini@hotmail.com>
braintree, ma - Sunday, October 16, 2005 8:22 PM CDT
In our prayers all the time!
www.caringbridge.org/ga/rheanacarter
www.rheanacarter.com
Heather Nonnies mom <morh2gs@alltel.net>
- Thursday, October 13, 2005 11:43 PM CDT
Just letting you know that you remain in my heart, thoughts, and prayers...
Hugs from,
Heidi in Idaho
- Thursday, October 13, 2005 5:14 AM CDT
ALWAYS IN MY THOUGHTS AND PRAYERS
LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Wednesday, October 12, 2005 10:41 PM CDT
Hi,
Just wanted to let you know that I am keeping you and the family in my thoughts and prayers. And I think of Angel Heather everyday. Knowing that she is painfree, running, playing and climbing trees up in heaven with all the other little kids. I can only imagine the pain that you feel everyday, and I pray that with time and the love of God that you will be able to remember all the wonderful memories you had with Heather. I am here if you need to talk, just call me. Love and Hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, October 11, 2005 0:57 AM CDT
Thinking of you all. Sorry I could make it to Heather's service in September, but Hailey was inpatient. I am planning to see you at the service at NEMC. Hope you are all doing okay. Heidi ~ hope you are feeling well.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Monday, October 10, 2005 8:08 AM CDT
Alex is just dropping by to say hello.
It was so nice to meet you all at the walk. The sun was shining and it was such a beautiful day. I loved that you put Heather's picture on the side of your wagon. We think of Heather every single day and pray for her and for all of you. I heard that the walk (both days) raised a total of approximately $64,000.00!
Please know that if you ever want to chat/email I would love to.
MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
- Sunday, October 9, 2005 6:22 PM CDT
Hi Angel Heather and Mom,
Heather..I know you are running and playing nonstop in heaven. Watch over Mommy and your family ok.
Heidi- thanks for the chats and the gb msgs..esp the ones this morning. Next time we chat will have to fill you in with what I found out. You angel will be in my prayers always and so will you.
Pam(www.pamsstory.org) <sylteach@aol.com>
nc - Thursday, October 6, 2005 11:38 AM CDT
Debbie Fields Murphy, NC Tuberous Sclerosis Assn. (Olivia's Grace http://groups.msn.com/OliviasGrace) http://www3.caringbridge.org/nc/catherine_nicole/ (Tuberous Sclerosis Chat Room) http://health.groups.yahoo.com/group/debbifmurphy/) <TuberousSclerosis@earthlink.net>
Snow Hill, NC USA - Thursday, October 6, 2005 7:08 AM CDT
Still praying for your family....
God Bless
Kris Vejvoda <kmvejvoda@cox.net>
LaVista, NE - Tuesday, October 4, 2005 9:36 PM CDT
Hi- We live in Colorado Springs, CO and wanted to let you know that I'm praying for your comfort and peace only God can give. You daughter touched the lives of many around the world! God bless you!
Brenda <nowincolorado@hotmail.com>
Colorado Springs, CO USA - Tuesday, October 4, 2005 9:34 PM CDT
You're always in my thoughts and prayers. Please know that I'm here with you always.
luv Kelly and Kirkland xoxoxo
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Tuesday, October 4, 2005 9:21 PM CDT
Just stopping by to see how you guys are doing. We're thinking of you. www.caringbridge.org/visit/kathrynnill
nancy nill <nln1960@yahoo.com>
commack, ny - Tuesday, October 4, 2005 6:03 AM CDT
Heidi, Paul and Family,
I knew that Heathers memorial service would be a gathering place for many. Heather touched so many lives in her short time here on earth. That cute smile of her's could capture anyone's heart. She was so very special. I thank you so much for allowing me to visit Heather the night I flew in from Pa. and then again a few hours before I was admitted to NEMC for my surgery. It meant the world to me to be able to pray with Heather. I know that God is taking the very best care of Heather right now. She is laughing, running, playing and watching Elmo videos. She is no longer in pain. And someday we will all meet again in heaven and that my friend will be a glorious day!! Thinking about you always. And keeping the whole family in my prayers.!! Love and Hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, October 3, 2005 10:58 PM CDT
Hi My friend told me about this group. http://www.compassionatefriends.org/
I hope this helps. There should be a chapter in your area.
Thanks and God bless you are all in our prayers. www.caringbridge.org/ga/rheanacarter or www.rheanacarter.com
www.caringbridge.org/ga/mikasjourney this is the child site of the mom who recomended that site. Let us know if there is anything we can do in ga for you!
Heather Carter mom of "nonnie" mito 1&3 <morh2gs@alltel.net>
winder, ga us - Monday, October 3, 2005 10:08 PM CDT
HEIDI & PAUL: MY PRAYER FOR YOU AND YOUR FAMILY IS THAT OUR GOD IN HIS INFINITE WISDOM WILL GIVE YOU COMFORT AND PEACE IN THIS TIME OF YOUR LOSS. SOMEDAY SOON WE WILL ALL BE TOGETHER WITH HEATHER IN OUR HEAVENLY HOME. WHAT A GREAT DAY THAT WILL BE.
DAN KURTZ, ELI'S PAPA <DADDYKOOL45@HOTMAIL.COM>
OMAHA, NE US - Sunday, October 2, 2005 9:56 PM CDT
i love checking in on the site and seeing heather peeking out at me. i hope you are all healing well...thinking of you...
jackie & joel & baby rafael www.caringbridge.org/visit/rafael <aeonflux4444@yahoo.com>
brooklyn, ny - Sunday, October 2, 2005 4:09 PM CDT
Heidi & Paul,
I am so looking forward to meeting you all at the walk on Sunday. It looks like we are going to have beautiful weather.
MaryBeth
www.caringbridge.com/vt/alex
MaryBeth <marybethlefevre@aol.com>
Williamstown, VT - Saturday, October 1, 2005 6:45 AM CDT
Just stopping by to see sweet little Angel Heather peeking out of the tree picture knowing she is dancing up above us all and wishing her a Happy birthday up above. I hope you guys are doing as best as can be expected. Sounds like the service was well attended. Heather was here for a purpose, just like all our little MITO kids. God Bless you all. Take Care. Debbie
www.caringbridge.org/ca/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, CA USA - Saturday, October 1, 2005 1:52 AM CDT
My prayers continue for your family. I too, have buried a baby girl in a dress purchased for another occasion. May the Lord bring His comfort to your hearts.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Friday, September 30, 2005 10:00 PM CDT
Heidi - Just thinking about you and your family. When it was Sam's birthday I went to his 1st grade class. One of the kids told us that whenever we felt the wind that day it was really Sammy blowing out his candles in heaven. I hope you felt the wind on Heather's birthday.
Anne, Zach and family www.caringbridge.org/wi/zachsam
- Friday, September 30, 2005 7:51 PM CDT
Heidi and Paul,
Heather's memorial service was a very beautiful tribute to her very short but very full life. The photo/music presentation really showed everyone the joyfulness of her spirit and at the same time the ongoing struggles. And the nurse who spoke about caring for Heather really conveyed how spunky and mischievous Heather was. I hope that the service was a comfort to you. Did you notice that more people came for the service than have been coming to church on Sundays? (at least at the first service which I go to). So many people wanting to honor Heather's life. Carry on, and may both God and your many friends support you in the days ahead.
Dawn <dawnand3dogs@charter.net>
- Friday, September 30, 2005 6:09 AM CDT
You continue to be in my thoughts and prayers.
Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com>
Ontario, Canada, - Wednesday, September 28, 2005 11:23 PM CDT
Thinking of everyone tonight. I'm so sorry I was not able to attend the memorial service, I imagine it was beautiful. Please let us all know when the memorial at the floating will be, I will be sure not to miss it.
heather <hvallatini@hotmail.com>
braintree, ma - Wednesday, September 28, 2005 6:02 PM CDT
Yes, Heather is in a place where there is no pain, no tears, no darkness or fear. The hearts of those left behind on this earth are the ones who suffer--who are left so filled with sorrow. I lift your family in my prayers today--as today is a special day--praying that you can endure--and for the days to come--so much to come...bless your hearts. With so much care--
Sheila
- Wednesday, September 28, 2005 7:56 AM CDT
Heidi and family-
My heart aches at the thought of you missing your precious baby Heather. Because of knowing Eli I know how bad the Mito diseases are, it is just so not fair that innocent babies are striken with this horrible disease. I pray for your strength to endure life without one of your beautiful children. Heather touched so many people even those (such as myself that she never met). I will keep updated on your story through Eli's web page and will continue to pray for your family and Heather as she dances in heaven with all her angel friends.
Sincerely
Kris
Kris Vejvoda <kristine_vejvoda@csgsystems.com>
Omaha, NE - Tuesday, September 27, 2005 8:57 AM CDT
Heidi and Paul...What a wonderful way to remember Heather -- by helping other families who spend so much time at the hospital. I just started receiving material from the MDAC, and recognized Heather right away. We are actually heading down to Plymouth this weekend. I will be walking in Heather's memory also. Your family remains in my family's prayers...
Theresa (mito-Angel Michaela's mom) <ray_gaetjens@yahoo.com>
Limerick, ME - Monday, September 26, 2005 5:53 PM CDT
Hi Heidi, Paul, Nick & Kaitlyn;
We have been thinking of you all a lot especially with Heather's birthday being yesterday. It must have been a day of mixed emotions. I can't help, but come to the site and look at sweat Heather peeking through the tree a few times a day ~ it is my favorite picture.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Monday, September 26, 2005 3:32 PM CDT
God bless you all during this difficult time, and always. I stumbled upon Heather's website a few weeks ago. There was just something about Heather that kept me coming back to her site and praying for her and her family. I am so sorry for your loss. It is nice to know that she is now in heaven looking over you all! What a special little angel. Blessings to your family.
Jill
MN - Monday, September 26, 2005 2:16 PM CDT
So very sorry to hear of your loss Heidi. My thoughts and prayers are with you. I hope you are comforted by the fact that she is now in heaven with other angels such as herself.
Faith E. Rockwood <frockwood@servicenetinc.org>
Bernardston, MA USA - Monday, September 26, 2005 9:45 AM CDT
Happy Birthday Sweetheart! I hope you enjoy your birthday cake, get to blow out some candles, and run around with all your angel friends. Missing you like crazy babygirl!! Just want you all to know I'm thinking of you on this difficult day. Stay strong, you have a beautiful angel watching over you all.
Heather ... 7med <hvallatini@hotmail.com>
braintree, Ma - Sunday, September 25, 2005 10:17 PM CDT
Heidi & Paul,
We are still praying for your family and for Heather. You are all in our hearts.
MaryBeth & Alex
www.caringbridge.com/vt/alex
MaryBeth <marybethlefevre@aol.com>
- Sunday, September 25, 2005 6:07 PM CDT
Heidi and Paul,
I am so sorry for taking so long to leave a message in Heather's guestbook, but the loss of this precious baby has hit my heart really hard.
I am so very sorry that we all lost such a precious Angel. Our loss of Heather is Heavens gain. I know this is extremely hard on the entire family and I send my deepest sympathies to you all. I pray that God will stay close by and bless you as you walk through the next few weeks. Remember you are never alone, we are all here for you, and so is God. May your memories of Heather carry you and guide you to a place where you are comfortable. I am forever grateful that I was able to see your precious Heather and pray with her. God Bless you all. If you need anything I am here for you. Just a phone call away. You will continue to be in my thoughts, close to my heart and in my prayers. Love and Hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, September 24, 2005 8:39 PM CDT
HEIDI,PAUL,NICK,KATIE
WE WERE SO SORRY TO HEAR ABOUT HEATHER.
SHE WAS A VERY LUCKY GIRL TO HAVE A MOM AND DAD LIKE YOU.
ALL OF OUR LOVE
MELANIE,TOM,LILLY,JORDAN,MAGGIE RUBECK
MELANIE RUBECK <trmr01@verizon.net>
EASTHAMPTON, MA 01027 - Saturday, September 24, 2005 1:45 PM CDT
WE ALL ARE GOING TO MISS HER SHE IS A VERY VERY CUTE GIRL
GRANDFATHER "GRANDPA GIBBONS" IS TAKING CARE OF HEATHER IN HEAVEN
KATIE GIBBONS <katiegibbons784@msn.com>
South Yarmouth, MA USA - Saturday, September 24, 2005 5:56 AM CDT
Paul, Heidi, Nicholas, and Kaitlin
Please accept my deepest sympathy for the loss of Heather. I admire the strength and hope you have displayed throughout this process. May you find comfort in the memories you have of Heather.
Diane Zink <zinkd@easthampton.k12.ma.us>
- Friday, September 23, 2005 4:03 PM CDT
Stopping by to let you know that I was thinking of you and your beautiful angel Heather this evening. ((hugs))
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.,net>
Southern California, - Wednesday, September 21, 2005 10:33 PM CDT
I continue to pray for your family every day. God has given you a very special measure of His grace. Thank you for sharing Heather with us.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Wednesday, September 21, 2005 8:36 PM CDT
Stopping by to let you know that I am thinking of you today.
Mandy (Angels on Earth)
mamatooryan
- Wednesday, September 21, 2005 3:47 PM CDT
Dear Heidi and Paul,
This is my first time to visit your website, which I found through another caringbridge site. I want you to know that I stayed up until 3 AM this morning reading your entire journal history. You have been through so much! Heather was, and will always be, a beautiful angel! I know that she brought you so much joy and taught you so much about pure love. I really don't know how you have all done so well, with your own medical problems and raising 2 other children. You have done a remarkable job of balancing your lives and giving your family the most "normal" life possible in your difficult situation. I am amazed by your strength and your ability to bear all that you have. I know God doesn't give us more than we can bear, but He sometimes gets as close as He can--for reasons we will know someday, hopefully! I don't know you, but I have learned so much from your experience, and I have cried with you for your terrible loss ( and Heaven's Gain)! I can't imagine how much your hearts must be aching for your sweet girl, but I hope that with God and time, you will find peace and joy again. I appreciate your fight against mito, and your plight to help find a cure. Our 22 month old daughter just had a fresh muscle biopsy in Atlanta, and we are awaiting the results. She probably does have mito, also. Thank you for sharing your story, your medical information, your intimate emotions, your incredible strength and perseverance, and your valuable insight. I think that what you have share through this website will help me and other families in our journey with our precious little ones. I will continue to pray for you in the difficult days to come. MAY GOD BLESS YOU AND YOUR FAMILY ALWAYS!
With Love and Hope Always,
Sonya Murray,
Mommy of Taylor (www.caringbridge.org/visit/tay-tay)
Sonya Murray <bamagirl01@comcast.net>
Smyrna, TN - Wednesday, September 21, 2005 3:28 PM CDT
Your daughter is beautiful. I will remember her and share her picture with my daughter. I od not know you but you all are in my thoughts and I pray for you.
Sheryl
www.caringbridge.org/visit/trinity
sheryl sumlin <sherylsuml@yahoo.com>
atlanta, ga usa - Wednesday, September 21, 2005 9:37 AM CDT
We are praying for you I am so sad for your loss.Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, September 21, 2005 0:53 AM CDT
Dear Heidi and Paul,
Thank you so much for sharing the intimate last moments that you spent with Heather. It is very soothing for me to hear you talk so warmly about such a difficult time. I continue to cry when I think of what you must be feeling right now. Your experience has hit very close to home as Kirkland's mito disease continues to progress each day.
I pray for your strength and ability to deal the grief and fear that you might feel right now. Know that I share it with you and I fear it too. May God bring peace to you at this time and may you feel Heather's presence in your heart always.
My love to you,
Kelly, Kirkland's mom Complex One Deficiency
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Tuesday, September 20, 2005 9:40 PM CDT
Dear Heidi and Paul...I'm so thankful you both had a special time with your beautful Heather before she earned her angel wings. May God bless you and your family and bring you comfort, peace and strength in knowing your sweet Angel is free from suffering and is now watching over you. I'm terribly sorry for your loss...you are in my thoughts and prayers. Lots of hugs from Kirkland's Aunt Tracey
tracey johnson <traysea64@hotmail.com>
toronto, on canada - Tuesday, September 20, 2005 8:35 PM CDT
Love Always
My Loving Dad's Site <brurka@shaw.ca>EDMONTON,ALBERTA CANADA, - Tuesday, September 20, 2005 6:56 PM CDT
I am so sorry to hear of the passing of Heather. She is a beautiful little girl. I prayed and will continue to pray so hard for you and your family. I know it has been a rough time.
Stephanie <stephot1@hotmail.com>
Phoenixville, PA - Tuesday, September 20, 2005 3:45 PM CDT
I am so sorry for the pain you are feeling. I know your beautiful Heather is free of pain and will always be with you though. Sending you huge hugs.
Angela -Heather
- Tuesday, September 20, 2005 2:41 PM CDT
You are all in my prayers.
Patti May
San Angelo, Tx USA - Tuesday, September 20, 2005 2:18 PM CDT
I am so sorry to hear of your loss. I'm sure Heather is watching over you, and all the mito kids. She was truly a trooper, and I know she got it from you.
Carrie and Grace
North Ridgeville, Oh 44039 - Tuesday, September 20, 2005 1:13 PM CDT
Dear Heidi and Paul and family- I was so sorry to hear of Heather's passing. I have been out of town and was not intouch with what all had been going on. Please know that you are all in my heart and in my prayers. May God grant you much comfort and peace in the days to come. With love and support, Allison
Allison (TPN Support) <lilqt4u1984@aol.com>
Owensboro, KY - Tuesday, September 20, 2005 12:33 AM CDT
His peace He leaves with you and the comfort of knowing that you will see your beautiful little girl again one day. Meanwhile, I cry with you! Barbara S.
Babara S. <bliva18@charter.net>
CT - Tuesday, September 20, 2005 12:20 AM CDT
Praying for you...........
Stephanie & Alec www.caringbridge.org/sd/alec <raisingwrestlers@iw.net>
Harrisburg, SD - Tuesday, September 20, 2005 10:44 AM CDT
I am thinking of you and praying for strength to help you get through the difficult days ahead.
Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com>
Ontario, Canada, - Tuesday, September 20, 2005 10:38 AM CDT
I am so very sorry to hear of the passing of your beautiful Heather. May God welcome her and comfort you.
Carol DuPont <purplegromit@comcast.net>
West Chester, PA United States - Tuesday, September 20, 2005 10:06 AM CDT
You are in my thoughts as you struggle with losing your precious Heather.
Michelle Smith <achel3@yahoo.com>
- Tuesday, September 20, 2005 7:39 AM CDT
I am so sorry for the loss of your little girl Heather.
Sending a giant cyber space hug to you
Kindest regards
Tammy Clark
Jenna (Feb17/02-Nov22/02)-Medium Chain Acyl-CoA Dehydrogenase Deficiency (MCADD)
Tammy Clark <tammyclark@rogers.com>
- Tuesday, September 20, 2005 7:31 AM CDT
In my thoughts and prayers,
Cassandra <cmraven@msn.com>
Albuquerque, NM - Monday, September 19, 2005 11:24 PM CDT
Just thinking of you....the silence of the house was/is still so hard for me and I am guessing that is beginning to hit you as well.
As you prepare for the celebration of Heather's life I want to tell you what a dear friend whose little son died told me as I prepared for Sam's service. I was very manic - putting together displays, pictures, music, etc. I wanted so much for the whole world to see SAM shining through at the service and to remember him as a precious child.
My friend told me that she understood my mania (she had felt it too) but that what she realized at her son's funeral was that God had already taken care of everything for her. Everyone there did know her son for the precious human being he was and nothing she could do would come close to what God had already made clear in all of their 'and family's hearts.
I will tell you that it was so true. I spoke about Sam at his service but I'm not sure I needed to for everyone had already made it clear that they knew him and were impacted by him. It is the same with Heather. God has taken care of that for you - she touched so many lives and what you do for her service will only compliment what Heather and God have already done.
Anne, Zach and Sam in heaven www.caringbridge.org/wi/zachsam
- Monday, September 19, 2005 9:26 PM CDT
I am so sorry for your loss. My prayers are with you and heathers siblings. My heart breaks for your family, Thank you for sharing heather with us. www.caringbridge.org/ca/kourtney
Laura , Kourtneys mom <kourtneysmom2002@yahoo.com>
ca - Monday, September 19, 2005 4:30 PM CDT
There are no words to express the deep sorrow I feel for you in my heart. Prayers are with your family in this time. Heather was a fighter, a precious little angel, a teacher, a gift from God. She is now dancing in Heaven. I am in tears reading your CB site, but please know my thoughts and prayers are with you in this time. Take Care God Bless.
Debbie
www.caringbridge.org/ca/taryn
Debbie Fogel <ejfdrf@sbcglobal.net>
Corona, CA USA - Monday, September 19, 2005 10:38 AM CDT
you and your family are in our thoughts and prayers.
madelyn and dick levy
cincinnati, ohio USA - Monday, September 19, 2005 9:53 AM CDT
Words cannot express my sorrow for your loss. I understand your conflicting feelings. We lost our sweet grandaughter a year ago in April. Thinking of her being without pain is what gets us through. Know that my thoughts and prayers are with you.
Joanne
Santa Rosa, CA USA - Monday, September 19, 2005 9:32 AM CDT
I am so sorry for your loss. I have only recently started reading your website and I wanted to let you know that you are in our thoughts and prayers as you go through these hard times. As I sit here in tears writing this, I imagine Heather and all of the other kids that have been taken to heaven running and playing together. I also imagine all of the grandmas that have been taken to heaven playing with these kids and giving them all of the same love we gave them here on earth. Please know you will continue to be in our prayers as you go through these sad times. God Bless, Jeff and Bonnie Luskey
www.caringbridge.org/mn/patrickluskey <bonniel@starband.net>
Belle Plaine, MN USA - Monday, September 19, 2005 8:45 AM CDT
My thoughts and prayers are with you and your family through this most difficult time. It is now Heather's time to watch over and protect you.
God Bless you and your whole family. She was truely an angel.
Kelli <kj1021@aol.com>
Hampton, MN USA - Monday, September 19, 2005 8:45 AM CDT
I know I don't know Heather and your family personally but I felt I have gotten to know you through her website. What a brave little angel Heather is I pray that your family finds peace in knowing she is no longer suffering. I will offer up extra prayers for Heather and your family as I have been doing this past few weeks when Heather was in the hospital.
God Bless
Kris
Kris Vejvoda <kristine_vejvoda@csgsystems.com>
Omaha, NE 68128 - Monday, September 19, 2005 7:40 AM CDT
Our thoughts and prayers are with you and your family.
God Bless you all.
Diana mother to Nicole Kelli (Complex 1)
Diana <deedee2n@aol.com>
Glen Oaks, NY 11004 - Monday, September 19, 2005 6:43 AM CDT
Heidi and Peter, I am very sad to hear of the loss of your beautiful child.
Pamela <pamelama33@hotmail.com>
Sydney, Australia - Monday, September 19, 2005 3:30 AM CDT
There are simply no words to express the sadness I feel in my heart. Please know I am lifting your family up in prayer and gentle thoughts are keeping you close in spirit.
With Deepest Sympathy-
Ann Eide <HFMito@cableone.net>
Columbus, MS - Monday, September 19, 2005 2:23 AM CDT
I was so saddened to hear the news about your precious little daughter. My thoughts and prayers are with you and your family.
Marge Calabrese <mmcalabrese@cox.net>
Glendale, AZ USA - Monday, September 19, 2005 0:43 AM CDT
I am so sorry for your loss of Heather. Her life was a struggle, but she touched your lives in a way that you will always hold close to your hearts. I'm glad you were all together at the end. Hugs to all of you.
Laurie Fitzgerald <laurie.fitzgerald@gmail.com>
Jackson , MI United States - Monday, September 19, 2005 0:36 AM CDT
I'm so sorry for your loss.YOu will be in my thoughts and in my prayer's always.
Love Always Brenda My Loving Dad's Site <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Monday, September 19, 2005 0:28 AM CDT
We are so very sorry to hear of your loss,we had just found your page through out grandson, Cadens'page, may God be with your family and give you strength.
Pat Lee <donlee@web-access.net>
Coleman, Texas USA - Monday, September 19, 2005 0:18 AM CDT
we are so sorry for your loss. i have had tears in my eyes for a long while thinking about it all, very sad, and your journal entry comforted me so. i pray for comfort for you and your family, you truly did everything you could to give her a wonderful rich life, and the fund will truly be a great way to honor her memory. may God continue to give you and your family strength during this hard time.
jackie and joel and baby rafael www.caringbridge.org/visit/rafael <aeonflux4444@yahoo.com>
brooklyn, ny - Sunday, September 18, 2005 9:28 PM CDT
My thoughts are with you during this difficult time. May you find comfort in the days to come. Your Heather is now playing with my granddaughter Morgan and all the other special angel babies.
Kathy Fields (www.caringbridge.org/nc/morgan) <dustykathy@aol.com>
Archdale, NC - Sunday, September 18, 2005 8:55 PM CDT
I am so sorry for the loss of your beautiful little girl. You have impacted so many by sharing her story. Thank you for doing so. May God bless you and give you the strength you need.
Christina- a friend of Eli's
- Sunday, September 18, 2005 7:11 PM CDT
Hiedi,
After reading your entery my heart is smiling as in my mind I wantch her run and play. She was such a sweet girl it was easy to fall in love with her and share her gentle spirit. I am so happy that you and Paul got to snuggle, that baby loved her parents so much and I am sure it was contentment that caused that smile. Give Nick and Katie a big hug from us.
Joann LeGeyt <legeyt213@yahoo.com>
Housatonic, Ma USA - Sunday, September 18, 2005 5:35 PM CDT
With tears in my eyes and a heavy heart, please know that I am praying for you. I do believe Heather is now dancing with the Angels!
Kris & Ellie, 3 years old, Mito - Leigh's (www.caringbridge.org/oh/ellie) <mkovalci@columbus.rr.com>
Powell, OH United States - Sunday, September 18, 2005 1:07 PM CDT
Words can not express the sadness I feel for your loss. I pray that God brings your heart relief and rewards you richly for the sacrifices you have made in this life for Heather. Passing is one of the greatest mysteries man has faced; we can only trust the spirit of God to comfort us. Let not the sadness of passing cloud the memories of her unconditional love she has for those in her life, she will travel on that plane of time which everyone shall travel. She will carry the Love she knew here and use it there to support and help us who are still earth bound. You will be in my prayers.
Mr.Dan
www.rheanacarter.com
Dan Dacus <dacus222@aol.com>
Flowery Branch, Ga USA - Sunday, September 18, 2005 12:00 AM CDT
Dear Heather's family,
I am so sorry for your loss. I'm lifting you all up in prayer. Even though you know Heather is perfect and in heaven, I can only imagine the pain in your hearts not having her on earth with you. Thank God we know you will one day be reunited with her.
Isn't it amazing how much a little child can teach us so much about life? I know she has touched more people and her journey was such a witness to others and will continue to be.
Much love and prayers,
Leslie
www.caringbridge.org/visit/morganreynolds
Leslie Reynolds <rey7@bellsouth.net>
Atlanta, GA - Sunday, September 18, 2005 10:31 AM CDT
So sorry to hear of your loss. She is a very beuatiful little angel now. You were truly great parents.
The West Family <karenpuddn@comcast.net>
Gallatin, TN - Sunday, September 18, 2005 10:29 AM CDT
I am so sorry for your loss. I pray that you know Heather is looking over you now. She is with friends from this group and they are happy.
I pray for comfort for you and your family.
Michele Hendrix (aka Lyta from tpnsupport) <lyta2000@triad.rr.com>
High Point, NC USA - Sunday, September 18, 2005 9:57 AM CDT
You are in my thoughts and prayers.
Geri-Anne and Wyatt, complex I
caringbridge.org/mn/wyattc
Geri-Anne Zubich <gazecc@hotmail.com>
Golden Valley, MN - Sunday, September 18, 2005 8:16 AM CDT
I am so sorry for the loss of your precious Heather.
"When you've suffered the loss of a child,
It may be comforting to know,
There's a special place in Heaven,
Where all Gods Children go.
It is a happy, peaceful place,
Where no child ever cries,
They are innocently content to be,
A blessed Angel in your eyes.
The one and only need they have,
Is for you to understand,
That only very special Children,
Are placed in Gods loving hand.
The Lord smiles down upon them,
While in his tender care,
As they patiently await the time,
That you will meet them there.
And though the time on Earth short lived,
Please set your sorrow free,
For one day in Gods Holy Land,
Together you will share Eternity.
- Chris Woolnough - "
Regards Jenny, mom to
Jenny McManus <jenibru@earthlink.net>
Clewiston, FL - Sunday, September 18, 2005 6:30 AM CDT
I am so sorry to hear of the lose of your beautiful little girl. Your Angel on Earth is now your Angel in Heaven. You are all in my thoughts and prayers.
Ann <garyann@bigpond.net.au>
Brisbane, Qld Australia - Sunday, September 18, 2005 1:20 AM CDT
Heather's family: Sorry to hear of your loss. My thoughts and prayers are with you.
Dawn Anich <Danich1@wi.rr.com>
Racine, Wi - Saturday, September 17, 2005 11:09 PM CDT
Heidi, Paul and family,
I am so sorry for your loss. God gave you this precious gift and gave you such joy and now as she has earned her wings to be in heaven with God. She fought hard for you and she knows that you will always love her. I have enjoyed reading about her on this site and my arms encircle you as you grieve.
karen and justin brubaker <karenbrbkr@yahoo.com>
olympia, wa - Saturday, September 17, 2005 10:48 PM CDT
Prayers are with you always..
www.elisangels.com
Kristi <KristiMarie2007@aol.com>
- Saturday, September 17, 2005 10:22 PM CDT
Heidi and Paul, Nick and Katie,
It is so amazing to see the support you all have. It has been a hard few days but you have not walked through them alone. You have an amazing amount of people who love you and you have become an inspiration to those of us who love you. God gave you a wonderful gift because He knew you were special enough to deserve it. You did an amazing job, and you did it gracefully. Heather was here to teach us all a lesson in joy. I never heard her cry, but I saw plenty of "heather poses", and monkey climbs. She enjoyed it all. She was sweet, loved and most of all she was happy. That is a testament to your parenting. Nick and Katie, you both were the BEST sister and brother a little girl could ever have. She is making a special play spot for you in heaven right now. She will be right with you everyday when you go through life. She will be your guardian angel. She will give you that warm feeling when all else fails. She will infect you in a moment with that sweet grin that is in your mind like a photograph. She loved you all just as much as you loved her. She didnt leave any one of you!! She is right in your heart. Look....you will always see her.
Love to all of you
Donna & Rod Thorell and Tim too <iluvdizney2@adelphia.net www.caringbridge.org/ma/thorell_kids>
- Saturday, September 17, 2005 9:20 PM CDT
Dear Heidi, Paul, Nick and Kaityln
Heard about you from Kirkland's site. Our heart and prayers goes out to you all!
Love
Mary, Mike Slade and the kids <mar-e@rogers.com>
Guelph, Ontario, Canada - Saturday, September 17, 2005 9:17 PM CDT
We are thinking of you with heavy hearts. I hope you can feel the embrace of all who loved Heather and care for you and your family. She is now at peace,and we will rejoice. Please take care of your health, Heidi, and love your family with all your might, as they love you!! Peace and hugs, Suzanne, Zoe and Olivia Perryman
Suzanne Perryman <suzanne@embroideryjournal.com>
- Saturday, September 17, 2005 8:55 PM CDT
I found your site from Kirklands. I am so terribly sorry for your loss, your daughter Heather is an absolutely beautiful little girl. May the memories you hold dear help you through the difficult days ahead, you will be in my prayers.
Angel Katelyn's mom, Debbie <miraclegirl101@hotmail.com>
Wheatley, Ontario, Canada, - Saturday, September 17, 2005 8:55 PM CDT
I am sitting here in tears. Please know that my thoughts are with you.
Love,
Sara *Angels on Earth* <mthoroughman@verizon.net>
Seminole, FL - Saturday, September 17, 2005 8:18 PM CDT
My prayers for you during such a time of incredible stress and sorrow. Heather will be terribly missed. I pray that you will feel God's hands holding you up through this trying time.
Meagan & Sophie www.carginbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Saturday, September 17, 2005 8:06 PM CDT
Sorry to read about the loss of Heather. My thoughts and prayers are with you. All the best during this difficult time.
Robin Brunet <robinb@neptune.on.ca>
Bradford, Ontario Canada - Saturday, September 17, 2005 6:41 PM CDT
Know you are in my prayers.
Mandy (Angels on Earth)
mamatooryan
- Saturday, September 17, 2005 6:26 PM CDT
Found you from Alex's site. I can't imagine how you feel. Keep that amazing attitude that Heather still has. Sending prayers and thoughts.
Peanut - www.redbluebody.com
- Saturday, September 17, 2005 5:42 PM CDT
Paul, Heidi, Nick and Katie,
The only comfort I can send your way, is the remembrance that your sweet daughter, your princess is now the angel that will help guide you through this difficult time. Her body is at peace and the memories of her strength, determination and sweetness will always be with you. Our thoughts and prayers are with you and your family. God Bless you all. Love Jacquie, Jay, Colby and Chase Ouellette.
Jacquelyn Ouellette <jcjc@peoplepc.com>
Easthampton, MA USA - Saturday, September 17, 2005 5:35 PM CDT
I am so sorry to read that heather earned her angel wings. Please know you are all in our thoughts and prayers.
Angela *angels on earth* -HEATHER GRACE
<alisonheathersmama@gmail.com>
natick, ma - Saturday, September 17, 2005 4:55 PM CDT
Our thoughts and prayers are with you. We found your site from our nephew Alex' webpage. May you find peace.
Donna and John <ambratsmom@earthlink.net>
- Saturday, September 17, 2005 4:50 PM CDT
Our thoughts and prayers are with you and your family. I know she is in heaven dancing among the other angels.
www.caringbridge.org/il/lauren
Debra Brigando <dbrigando@mchsi.com>
Kentland, In USA - Saturday, September 17, 2005 4:18 PM CDT
Heidi, Paul, Nick & Kaitlyn,
Our thoughts and prayers are w/ you all. I know there is nothing I can say to make this better or easier for you, but please know that my heart is breaking for you & I'm here for you in any way that I can be. I wanted to share a sweet dream I had last night about Miss Heather. She was sitting in her chair watching Elmo w/ her hands behind her head, just lounging & happy & I, of course was in here way, so she just kept trying to look around me until I got the hint that I was blocking her view of Elmo. Seems that happened in reality almost every time I visited her during our many long hospital stays at Floating. Heather was an amazingly strong & happy little girl which is a credit to her wonderful parents. Heather will be greatly missed, but I will carry her in my heart always. She truly was an inspiration to me & always will be. Heidi & Paul, thank you giving me the priviledge of being able to say good-bye to Heather Wednesday night & allowing me to sit w/ you both for a short time during such an incredibly sad & difficult time in your lives. I only wish I could have offered something more than my presence that night. Nick & Kaitlyn, Heather loved you both so much. You are the best brother & sister ever. Don't forget that. Heidi, please don't hesitate to call me if I can help you in any way at all. I mean that w/ all my heart, my friend!!
Love, Hugs & Support,
Hope & Natalie (www.caringbridge.org/ma/natalie) <hope2222@hotmail.com>
Lowell, MA USA - Saturday, September 17, 2005 4:12 PM CDT
I am sorry to read about Heather. Your family is in my thoughts and prayers during this difficult time.
Tina & Lance <lancejrmommy@comcast.net>
- Saturday, September 17, 2005 4:12 PM CDT
We cannot even begin to comprehend what you must be going through. We are so deeply sorry for your loss and we will continue to pray for your family.
Sean, Cheryl, Abby and Emma Soares <casoares@verizon.net>
Plymouth, MA - Saturday, September 17, 2005 3:35 PM CDT
This news has saddened me and left me numb. I am so sorry you have had to feel the pain of the loss of you precious Heather. I tried to call you yesterday but couldn't get through. I have an open ear at anytime you may need one. We will be in prayer that God would grant you peace and comfort. Please take care of yourself as well.
Your friend
Darla Klein <honeybear50317@msn.com>
Des Moines, Iowa 50317 - Saturday, September 17, 2005 1:27 PM CDT
My deepest sympathies to your family at the loss of a beautiful child. But for Heather she is free from the burdens she bore. May God give your heart peace.
Becca <rr8503@dragonbbs.com>
Gallipolis, OH - Saturday, September 17, 2005 12:59 AM CDT
I am so sorry to read this update. My thoughts and prayers are with you.
Sara, Emily's mommy - http://www.caringbridge.org/ca/emilyalexisrose <waffle13@sbcglobal.net>
Southern California, - Saturday, September 17, 2005 10:57 AM CDT
Thinking of you all durring this difficult time.
Ann "Eli's Mommy" <akurtz1974@msn.com>
Brighton, Co USA - Saturday, September 17, 2005 10:53 AM CDT
I am so sorry for your loss. Praying for your strength.
anne r (asher's mom) www.caringbridge.org/fl/asher <areckling@aol.com>
boca raton, FL USA - Saturday, September 17, 2005 9:15 AM CDT
Thoughts and prayers and wishes for deep peace. Hugs, Maire, friend of Kelly and Kirkland
Maire Ketola <maire.ketola@sympatico.ca>
Brampton, On Canada - Saturday, September 17, 2005 8:51 AM CDT
I am so sorry. Heather has always been a source of inspiration for us, Hiedi you were one of the first people I talked to on the Mito list when Brandon was being diagnosed, so I have always kept tabs on Heathers progress. I am so sad to hear her battle has ended.
Keely and Brandon Schellenberg <kschellenberg@mts.net>
Winnipeg, Mb Canada - Saturday, September 17, 2005 8:42 AM CDT
We are so sorry for the loss of Heather. My heart goes out to your family.
gwen and family <gwenabele@hotmail.com>
Waltham, MA - Saturday, September 17, 2005 8:42 AM CDT
Dear Heidi, Paul, and family:
I am shaken to learn of Heather's passing and am so, so sorry. My heart aches for you and saddness engulfs me as I think of Heather's struggle and know how similar her life and fate is to my Kirkland's. Please know that I am here for you should you need a shoulder. I pray for God to bring peace and understanding to your hearts so that you are able to better cope with this difficult time in your lives.
With all our love,
Kelly and Kirkland xoxo
Kelly Kilbride <kilbridek@yahoo.com>
Georgetown, On Canada - Saturday, September 17, 2005 7:56 AM CDT
My Deepest Sympothies in the loss of sweet heather. Fly Free Sweet Angel
Michel <TinkerbeIIe76@aol.com>
Ypsilanti, MI USA - Saturday, September 17, 2005 6:50 AM CDT
My thoughts are with you now and always- checking on Heather always brought a smile to my face, and heaven has gained a beautiful angel.
Diana <dianasinger06@yahoo.com>
Dallas, TX - Saturday, September 17, 2005 1:34 AM CDT
I only knew Heather through her web page and never met her not her family however, I am touched and changed. God bless your family as you go through this painful process. I will be thinking of you.
Take Care
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Friday, September 16, 2005 11:32 PM CDT
My heart is heavy for you all tonight as you try to put together a life that has such a void in it. While we never can understand such things, know that God is taking care of her, (and you all) tonight, tomorrow and forever.
Daddy-O, Daddy of Olivia
Dave DeKold <amx1dcd2@aol.com>
Floyds Knobs, IN - Friday, September 16, 2005 10:23 PM CDT
Paul and Heidi:The world has lost a beautiful, courageous, resiliant little girl who taught so many so much. Yes, she is in heaven, but I also know that absolutely no time on earth would ever feel long enough to you her family and to all who love her. I am thinking of you as you as you try to get through these next few days with all of the preparations which feel so surreal and wrong in the modst of such emptiness. I know your heart feels ripped open and I'd give anything for you not to experience this.
Much love and prayers
And to Katie and Nick -I am so sorry. You will always be heather's big sister and big brother. Nothing will ever change that.
Anne, Zach and Sam in heaven www.caringbridge.org/wi/zachsam
- Friday, September 16, 2005 9:56 PM CDT
I'm so sorry for your loss.
((((Hugs))))
Trish Knight <trishknight@stennisfoundation.org>
Amarillo, TX home of Dr. Sam Stennis - Friday, September 16, 2005 9:30 PM CDT
our thoughts and prayers are with you and your family
www.caringbridge.org/visit/kathrynnill
nancy nill <nln1960@yahoo.com>
commack, ny - Friday, September 16, 2005 8:28 PM CDT
Heidi, Paul, and family: I can't imagine the grief you must be feeling right now missing your sweet little princess, Heather. God chose the most beautiful angel to sit by his side when he chose Heather and called her home. She will be missed, especially her infectious smile. I will keep all of you in my thoughts and prayers.
Cathy Ognissanti (Donna Thorell's friend) <holiwood77@yahoo.com>
Reading, MA USA - Friday, September 16, 2005 8:13 PM CDT
Dear Heidi and Paul,
There are not words adequate enough to express sorrow for your loss at this time. I'm so very sorry. Please know that you all and angel Heather will be in my heart and in my prayers. May you live with the cherished memories and let go of the pain...
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, September 16, 2005 8:06 PM CDT
Paul and Heidi,
I am so sorry for your loss. I had so looked forward to meeting Heather and all of you at the upcoming Mito walk. Heather is such a beautiful little girl and she touched our hearts. If anyone deserved to be free from all pain, it was she. Please know that we are thinking of you and praying for you throughout the difficult days ahead.
Love MaryBeth, Scott, Carolee, Spencer & Alex
www.caringbridge.com/vt/alex
MaryBeth <marybethlefevre@aol.com>
Williamstown, VT - Friday, September 16, 2005 8:01 PM CDT
I sit and cry for your sweet baby that I never knew...who reminds me so much of my sweet mito-angel, Michaela, who also loved Elmo, her walker, music and her brother and sister. Please know that your family is in my family's prayers at this time.
Theresa from Maine <ray_gaetjens@yahoo.com>
- Friday, September 16, 2005 7:26 PM CDT
Hi Heidi and Angel Heather and Family,
I just visited another caringbridge site after visiting yours earlier tonight and saw that your daughter, Heather, passed away, I am terribly sorry to hear that. I hope that everything is otherwise going well with the other children. I know that you will despiratly miss Heather, but always remember that for everyone who has gotton a chance to know this wondeful little girl of yours she is a figther and a strong one. I will be back to check on you soon. Take Care and God Bless Your Whole Family Through This Tough Time.
www.caringbridge.com/pa/amandafeld
Amanda Feld <mags11788@comcast.net>
W. Chester , Pa US - Friday, September 16, 2005 7:15 PM CDT
tears of sorrow for your family, missing heather as you always will. I can see her bright smile though, playing with our other TPN darlings who were brought to heaven earlier than we wished... knowing peace, joy, and love, more than could ever be imagined.
Know that we will keep your family in our prayers,
Hugs, Heidi and the Idaho gang
- Friday, September 16, 2005 6:33 PM CDT
Sending all my prayer's your way.I'm so sorry to read the update.My heart goes out to you for what you are going through.
Love Always
My Loving Dad's Site <brurka@shaw.ca>EDMONTON,ALBERTA CANADA, - Friday, September 16, 2005 6:31 PM CDT
I was so sad to read your latest update. I found her site only a few days agos through another site I visit. Heather is a beautiful little girl and will be an even more glorious angel. You have my prayers and hugs during this very difficult time.
Sending you so much love, hugs and prayers,
Barb <barbilens@yahoo.com>
la Crosse, WI USA - Friday, September 16, 2005 4:28 PM CDT
No words can express the saddness I felt when I read the update. I am sending many thoughts and prayers to you all in this time of sorrow.
Vicki & Caden Williams (mito) <vicki.williams@wallisd.net>
San Angelo, TX - Friday, September 16, 2005 3:28 PM CDT
To the dearest Coleman family. No words seem right to say. I just want you to know, Heather will be a gueardian angel to many people who loves her and she loved back. Your whole family are in my thoughts in prayers. Sandi, RN on 7med
Sandi <sjfrn98@yahoo.com>
Plymouth, ma - Friday, September 16, 2005 2:44 PM CDT
Heidi, Paul & Family
We are truly saddened by your loss. Even though we only just met I can tell what a strong girl Heather is and by that she has strong parents who showed her the way. Nothing I can say feels right. Except you have a loving, strong and devoted family. Your are with us in our thoughts and prayers.
Erin and Andrew MacLean <charlieerinwill2@msn.com>
Sandwich, MA USA - Friday, September 16, 2005 2:32 PM CDT
To Heidi, Paul, my buddy Nick, and Kaitie,
I am praying to God that he will comfort you through this terribly sad time. I am so sorry.
Dawn <dawnand3dogs@charter.net>
- Friday, September 16, 2005 2:28 PM CDT
I just heard about your loss and I am so sorry. We lost our granddaughter in February of this year (www.caringbridge.org/il/dylan). She too was put into a paralyzed state and was on a ventilator, kidney dialysis and all types of medication. She was like this for almost three weeks when her mom and dad made the decision to let her go. I know right now it is very hard for you but I know that she is in the right place just as I know Dylan is. The days will be hard but just remember how happy and peaceful she is now. Dylan and the other little angels will take good care of her. Know that you and your family are all in my prayers at this time.
Lynne Barker (grandma to angel Dylan Faith) <lbarker@asd.net>
East Peoria, IL USA - Friday, September 16, 2005 1:43 PM CDT
I just wanted to let you're whole family know that I am praying for your strength through these tough times. I hope you believe that Heather will be dancing and singing joyfully in the flowers in heaven - she is meant to do that.
Crystal Rossel
Cottage Grove, MN USA - Friday, September 16, 2005 1:17 PM CDT
Hi Heidi,
I just want you to know how truly sorry I am that your family is going through this. Even though I never met Heather, I feel like I have known her over the past year. As I get ready to celebrate my wedding tomorrow, please know that Heather is still in my heart. I hope her angel and all the angels of the mito children I have known will be present tomorrow at our ceremony. It would be such an honor to have her spirit there.
May God comfort you during this difficult time......
Love, Malisa
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Friday, September 16, 2005 12:40 AM CDT
My heart aches for your family. What a princess Heather is- I must agree with everyone- she will be a very special angel. No words can comfort you all right now- just know you are prayed for and Heather is healed in heaven forever.
Looking at Heather's photo in the ICU brings back so many painful memories of when my Morgan was in a drug induced coma last summer.
Love, Leslie www.caringbridge.org/visit/morganreynolds
Leslie Reynolds <rey7@bellsouth.net>
Atlanta, GA - Friday, September 16, 2005 12:25 AM CDT
Please know that I'm thinking of the whole family today. Heather was such a sweet princess and is now the sweetest little angel. It was such an honor and joy to take care of her and be involved in such a special family. You guys are the picture of love and strength. I will always remember Heather as the sweet little monkey who slept with her hands behind her head and loved elmo :)
Heather... F7M <hvallatini@hotmail.com>
Braintree, Ma - Friday, September 16, 2005 12:08 AM CDT
Hello Heidi, Paul, Nick & Kaitlyn,
Our PRAYERS go out to all of you.
I have no words that could even come close to comforting your family at this time.
Know that your TPN Family is here to support your personal family in any way we can.
Prayers, Blessings, & Support,
The Marino Family
Clearwater, FL 33764 - Friday, September 16, 2005 11:55 AM CDT
Heather you are now an angel and so many people are luck to have you looking over them now. You are such a beautiful girl who gave so much in you short time here.
Paul, Heidi, Nick & Kaitlyn: There are no words to say that will take the pain you are going through right now away. You are an amazing family and it is just not fair that you have been through so much. Thinking of you all.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Friday, September 16, 2005 11:02 AM CDT
My prayers are for you and your family, Heather, beautiful girl. God bless you.
gwen <gwenabele@hotmail.com>
- Friday, September 16, 2005 8:53 AM CDT
You are all in our hearts, thoughts and constant prayers...
Love,
Lee Anne Bye & Family
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Friday, September 16, 2005 8:14 AM CDT
My whole family's prayers and thoughts are with all of the Coleman family.
Heather--sweet little girl. You will always be forever loved and cherished.
Truly--Heather forever.
The DeKolds
Floyds Knobs, IN USA - Thursday, September 15, 2005 11:37 PM CDT
My prayers with you and your family in this hard time...
May God give you the strength and blessings from above.
H
- Thursday, September 15, 2005 10:00 PM CDT
My prayers with you and your family in this hard time...
May God give you the strength to carry you.
H.C.
- Thursday, September 15, 2005 9:59 PM CDT
We love you Heather and we continue to lift you up in prayer.
Love MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
- Thursday, September 15, 2005 9:57 PM CDT
Heidi and Paul - I sit here tonight and just cry at the thought of you feeling the pain of your child leaving her earthly home to go to her heavenly home. If I could spare this for you - I would. There are no words for what you feel and will continue to feel. Sammy and I had a nightly tradition from the day he was born - at first i recited the ee cummings poem to him and then little by little he learned it and said it with me. Heather will be in your heart always - in your joys and in your tears, in each family moment she will be there. Not in the way you want but always with you and you forever changed and blessed because of her. I am so sorry. No words can salve the pain you feel...please know I am here, having walked this road so recently, and I do care immensely. I am sad and mourn the loss to this world of a beautiful child.
Untitled
e.e. cummings
i carry your heart with me (i carry it in
my heart) i am never without it (anywhere
i go you do, my dear; and whatever is done
by only me is your doing, my darling)
i fear no fate ( for you are my fate, my sweet) i want
no world (for beautiful you are my world, my true)
and it's you are whatever a moon has always meant
and whatever a sun will always sing is you
here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud
and the sky of the sky of a tree called life; which grows
higher than the soul can hope or mind can hide)
and this is the wonder that's keeping the stars apart
i carry your heart (i carry it in my heart)
Anne, Zach and Sam in heaven and all of our family
Waukesha, WI - Thursday, September 15, 2005 9:47 PM CDT
Heidi & Paul
Our prayers are with you and Heather during this very difficult time.
Karen Nelson (TPN Support Group) <KMNelson86@aol.com>
Sanford, NC USA - Thursday, September 15, 2005 9:41 PM CDT
"We do not cease to pray for you, and to ask that you may be filled with the knowledge of His will in all wisdom and spiritual understanding...." Colossians 1:9
We continue in prayer,for Heather's healing tonight! Barbara
Barbara <bliva18@charter.net>
CT - Thursday, September 15, 2005 8:22 PM CDT
"We do not cease to pray for you, and to ask that you may be filled with the knowledge of His will in all wisdom and spiritual understanding...." Colossians 1:9
We continue in prayer,for Heather's healing tonight! Barbara
Barbara <bliva18@charter.net>
CT - Thursday, September 15, 2005 8:21 PM CDT
Dear Heidi and family: Praying for you all at this time!
Cindy Cruz (from mito list) <rella19@verizon.net>
- Thursday, September 15, 2005 8:16 PM CDT
Heidi, Paul and family
This has been a difficult journey for you all and thru it all you have stuck to together and trusted God. I just wanted you to know that you are all in my prayers.
Heidi- I was going to call you today but when i read Donna's post i decided that you needed time with Paul and Heather right now at this time.
God Bless
Heather www.caringbridge.org/pa/heather <heatheres@enter.net>
- Thursday, September 15, 2005 4:38 PM CDT
Little Heather, God Bless you and your sweet family. I am so sorry.
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Thursday, September 15, 2005 4:35 PM CDT
Found your link on Eli's site asking for prayers, I have been down this very difficult road you are traveling and will pray for Heather and your family.
Denise
Mom to Courtney(inHeaven)Sydney(DS)&Seth
www.caringbridge.org/in/sydneylynne
Denise Pequignot <dpequignot@earthlink.net>
South Whitley, IN USA - Thursday, September 15, 2005 4:35 PM CDT
Hello Heidi, Paul, & family,
Our PRAYERS are with you all during this difficult time.
We see your whold family enfolded in GOD arm's of love & light.
I don't have any magic words to give you but know our prayers are with you all.
Prayers, Blessings, & Support,
Lesley Diane Marino
Clearwater, FL U.S.A. - Thursday, September 15, 2005 1:05 PM CDT
I found your website through another caringbridge page, and wanted to let you know that I am thinking of you all through this difficult time. Heather is beautiful, and I hope that she recovers as well as she can to come home with you soon!
Crystal Rossel
Cottage Grove, MN USA - Thursday, September 15, 2005 12:10 AM CDT
My prayers are with all of you.
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Wednesday, September 14, 2005 7:26 PM CDT
Heidi and Paul,
Prayers for the miracle you are hoping for Heather, and wisdom for her doctors at this critical time, and prayers for your health are also being lifted up Heidi.
Dawn <dawnand3dogs@charter.net>
Easthampton, - Wednesday, September 14, 2005 6:03 PM CDT
Hi Heather,
I know you will get better, You look like a fighter. So just keep fighting. God is on your side. Keep up the good work cutie, You're a tough kid. Get well soon
Stefani D
Stef Dickinson <StefSY@aol.com>
South Yarmouth, MA USA - Wednesday, September 14, 2005 1:14 PM CDT
You go little miss! You know how to do this, time to show us all what you're made of! Hang in there and keep fighting, well all miss you and can't wait to see those hands behind that head relaxing!! Thinking of the entire family everyday. Stay strong, she's a fighter!
Heather... F7M <hvallatini@hotmail.com>
Braintree, ma - Wednesday, September 14, 2005 10:19 AM CDT
I have come here from another caringbridge page and muct say that I am in total awe of Heather. She is such a fighter and a beautiful little girl. I am so proud of her. You all are in my thoughts and prayers as you make your way throught his very difficult time.
Sending you extra love, hugs and prayers
Barb <barbilens@yahoo.com>
La Crosse, Wi USA - Wednesday, September 14, 2005 8:56 AM CDT
Yeah Heather! Wonderful news!
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Wednesday, September 14, 2005 8:38 AM CDT
I am in tears over the latest update!!!! Great news!!! Prayers continue for Heather to keep progressing and getting better each day (here is to small miracles!!!)
God Bless
Kris
Kris Vejvoda <kristine_vejvoda@csgsystems.com>
Omaha, NE 68128 - Wednesday, September 14, 2005 8:23 AM CDT
We heard about Heather on Sunday, and we prayed with Sally's parents for a complete healing. It is a matter of utmost urgency to the Lord that Heather survive, thrive and be a testimony of His goodness! We continue to pray daily.I love seeing her beautiful little face!!
Cynthia and Rick Diehl <cynthiabd@optonline.net>
Wilton, CT USA - Wednesday, September 14, 2005 8:03 AM CDT
Heidi, I am SallyAnne's mom (trying once again to get this out to you)wanting you to know that we keep your precious family in much prayer! There will be a wonderful testimony coming from you one of these days. Heather is a very feisty little girl and we believe that she and all of you will win this difficult battle! Do not give up!!!You have our prayer support.
Barbara <bliva18@charter.net>
CT - Tuesday, September 13, 2005 9:11 PM CDT
praying for all of you during this difficult journey
mark and cathy machak (cc family)
mark and cathy machak <mb4bears@comcast.net>
college church, ma usa - Tuesday, September 13, 2005 9:06 PM CDT
Prayer for all involved-Heather, family, doctors, and medical staff. God is in control, especially when we're not. He loves you all.
CC friend
- Tuesday, September 13, 2005 8:37 PM CDT
Sending you good thoughts and hope. (I'm Samantha's uncle Phil).
Phil <phil@bwgproductions.com>
Sunnyvale, CA - Tuesday, September 13, 2005 4:28 PM CDT
Hi Heidi and Heather,
I am so happy to come read your journal entry today and see that Heather is doing much better, horray!!! for small miracles. I hope that everything continues in this direction for Heather and that your whole family can be able to come home soon. On a side note from Miss Heather, Heidi I hope that you are doing better with your health and that whatever surgeries that need to be performed happen and that you are back to good health soon and that you can both be home to enjoy each other's company and share all the times you have together. I wish your whole family the best of luck and happiness. I will be FROGing for everyone!
Please visit- www.caringbridge.com/pa/amandafeld
Amanda Feld <mags11788@comcast.net>
W. Chester , Pa US - Tuesday, September 13, 2005 3:34 PM CDT
Hooray for small miracles.........
Still praying............
Kris
Kris Vejvoda <kristine_vejvoda@csgsystems.com>
Omaha, NE 68128 - Tuesday, September 13, 2005 10:15 AM CDT
Continued prayers--
Sh <SHEDEKOLD@aol.com>
- Monday, September 12, 2005 11:11 PM CDT
You're a great little fighter Heather! Stay Strong!
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Monday, September 12, 2005 10:27 PM CDT
I keep checking in several times a day to see how she is doing. I will continue to pray for your family. My prayers are with you during this tough time.
Jennifer and Zachary
bremerton, wa - Monday, September 12, 2005 9:13 PM CDT
Continuing prayers for Ms Heather as well as you Heidi and Paul during this rough & frightening time.
Karen Nelson (TPN Support Group) <KMNelson86@aol.com>
Sanford, NC USA - Monday, September 12, 2005 8:55 PM CDT
Thinking about all of you and praying. Keep up the fight Ms. Heather.
Susan McCarthy (Caitlins Mom) <mccarthysusie@yahoo.com>
walpole, Ma - Monday, September 12, 2005 8:44 PM CDT
way to go Heather! you have been in my heart and mind all week and want you to know I love you and am looking forward to you crawling all over me again trying to get out of my arms! Keep up the fight....we are storming heaven for you!
Donna Thorell <iluvdizney2@adelphia.net www.caringbridge.org/ma/thorell_kids>
- Monday, September 12, 2005 8:19 PM CDT
Hiedi and Paul, All of our thoughts, prayers and best wishes are being sent your way. God Bless
Jacquelyn Ouellette <jcjc@peoplepc.com>
Easthampton, MA USA - Monday, September 12, 2005 4:34 PM CDT
continuing prayers.....
for ALL involved.... doctors, nurses, parents, family friends... especially so for Heidi and Heather.
Hugs and prayers, Heidi and the Idaho gang
- Monday, September 12, 2005 1:36 PM CDT
Heather has been in my prayers. I can't get her off my mind...just want you to know I am thinking of you. Hoping things are better today.
Malisa <malilibear@aol.com >
- Monday, September 12, 2005 12:09 AM CDT
Heather, God bless you little girl. You have caught my heart and my continued support. I will pray for you and your great parents.
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Monday, September 12, 2005 9:35 AM CDT
Lifting heather up in prayer!
Jennifer and Zachary
bremerton, w - Monday, September 12, 2005 9:02 AM CDT
Prayers for sweet Heather.
Kris
Kris Vejvoda <kristine_vejvoda@csgsystems.com>
Omaha, NE 68128 - Monday, September 12, 2005 8:00 AM CDT
Praying. . .
Sh
- Monday, September 12, 2005 7:51 AM CDT
Tons of prayers are coming out of Ohio for you all... Not just for sweet Heather but for the whole family... Hang in there, Heather and beat this...
Kristi <Cubbiefankristi@aol.com>
- Monday, September 12, 2005 5:16 AM CDT
Dear Heidi and family: I am praying for Heather tonight and praying for peace and wisdom for your family. With lots of care and concern,
Cindy Cruz (from mito list) <rella19@verizon.net>
Edmonds, WA - Sunday, September 11, 2005 11:14 PM CDT
STORMING HEAVEN with prayers
MaryBeth & Alex
MaryBeth www.caringbridge.org/vt/alex <marybethlefevre@aol.com>
- Sunday, September 11, 2005 10:11 PM CDT
Heidi and Paul - I just do not have the right words to say what I feel. Praying for your wisdom and for miracles for heather.
Anne J www.caringbridge.org/wi/zachsam
- Sunday, September 11, 2005 5:36 PM CDT
Praying from Idaho...
know that we care muchly and are thinking of you all often each and every day...
lots of hugs,
Heidi (Sean's mom)
- Sunday, September 11, 2005 4:23 PM CDT
What an absolutely beautiful little girl. You are in my thoughts and prayers!!!
Jodi
www.caringbridge.org/mi/jacobm
Jodi <morley48312@hotmail.com>
- Sunday, September 11, 2005 12:29 AM CDT
You are in our THOUGHTS and PRAYERS. Bless your friends for coming--may more come--strength.
((Heidi))
Sheila
Floyds Knobs!, IN - Sunday, September 11, 2005 0:47 AM CDT
We are praying hard!!!!
Love,
The Simoes
Heidi Simoes <Lexicam24@cox.net>
Johnston, RI USA - Saturday, September 10, 2005 9:04 PM CDT
Heidi you know I am there for you whenever you need me. I love you both and think about you two constantly. Stay strong!!!
Holly <hsd38sps@comcast.net>
- Saturday, September 10, 2005 1:51 PM CDT
Dear Heidi I don't know where you find the strength and I do hope you are taking care of yourself too. Saying prayers for your precious Heather and you too! Gentle Hugs and storming heaven for Heather, you and your dear family!
LeeAnne, Sammi & family (tpn list)
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Saturday, September 10, 2005 9:08 AM CDT
I saw a prayer request for Heather on another Website and wanted to stop by and let you know that your family is in my thoughts and prayers.
Jennifer G from the prayer bears <charay913@yahoo.com>
Bridgeport, Texas - Saturday, September 10, 2005 8:21 AM CDT
When the prayers go up.....
the Blessings come down....
Stormin' the heavens with prayers for Heather. And Heidi you are also included in those prayers. I wanted to let you know that I am flying up to Boston on Sunday. Staying at Doubletree. I lost your cell phone number, so if you can send me a quick email with your cell # I will call you when I get in on Sunday. Until then take care, stay strong and keep the Faith. Love and Hugs, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, September 10, 2005 0:24 AM CDT
I have been checking your site every day since Ann had you on Eli's site. I will keep you and Heather in my thoughts and prayers. I am so sorry for your daughters suffering. I know how hard it is too watch and not being able to hold her. I pray that God finds some sort of comfort for you both soon. Much love and hope!
www.thelilyfoundation.org
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Friday, September 9, 2005 9:55 PM CDT
Heidi, what a terrible day. God is with you every step of the way. I hope Heather has a stable night. So many people continue to pray for her, more every hour from the looks of the guest book.
Dawn <dawnand3dogs@charter.net>
Easthampton, - Friday, September 9, 2005 8:23 PM CDT
We haven't me but your little girl has touched my heart and we will be sending up our prayers. I am so sorry you have to go through all of this horrible stuff. God Bless you all.
Karen and Justin <karenbrbkr@yahoo.com>
Olympia , WA - Friday, September 9, 2005 8:00 PM CDT
Know that we are praying for you and your beautiful baby girl.
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Friday, September 9, 2005 2:11 PM CDT
You sweet little girl. Storming the heavens with prayers for you...Peace little one.
God Be with you and your family during this fight. You just hang in there princess.
Ann
Brighton, Co USA - Friday, September 9, 2005 1:52 PM CDT
Hang in there princess! Baby steps are okay for now... but I'm hoping for some leaps and bounds by next week! I'll visit you when I'm at work again, our last visit was too short! Take care of yourself Heidi, make sure you are getting what you need too!
Heather <hvallatini@hotmail.com>
F7 med, ma - Friday, September 9, 2005 9:39 AM CDT
HANG IN THERE YOU ARE IN MY PRAYERS
KATIEGIBBONS <KATIEGIBBONS784@MSN.COM>
SOUTH YARMOUTH, MA USA - Friday, September 9, 2005 8:22 AM CDT
You don't know me...but I wanted to let you know...all the children in the Caringbridge community has a special place in my heart. I hope you do not mind...but I have added Heather's name on my son's web page so more people may lift her name up in prayer.
http://babiesonline.com/babies/b/bubble/
May God Send Blessings Your Way!
Julie Leonard <ajulie4u@yahoo.com>
Mocksville, NC USA - Friday, September 9, 2005 7:59 AM CDT
Oh Heidi,
Heather is such a precious little one that it is so hard to see her like that. I know she is comfortable. And I prayed and asked God to please wrap his healing arms around little Heather and allow his healing blood to flow from him into her sick little body so that she can be healed. I know he will heal her, she is so very special. Now she is resting and with this rest her body will continue to heal itself. Is there anything I can do for you Heidi? I will be coming up to NEMC on Sept.11th. Call me and let me know if I can bring anything or help in anyway. I hope to see you guys before my surgery. Love and Hugs to you All, Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Thursday, September 8, 2005 10:57 PM CDT
We are friends of Brenna and Hailey's. Little Heather we are praying for you and thinking of you.
Sean, Cheryl, Abby and Emma <casoares@verizon.net>
- Thursday, September 8, 2005 10:05 PM CDT
Prayers for you sweet Heather...
Kristi <CubbieFankristi@aol.com>
- Thursday, September 8, 2005 9:28 PM CDT
Heather:
My first visit but I'll be back often. Just stopped by to say Hi & let you know I'm thinking of & praying for you & your family.Charlene
OWC, Dabbles & Doodles, Angel_Wings etc
& proud mom 2 BECKY
Ont. Canada <ur_secret_pal05@yahoo.ca>
- Thursday, September 8, 2005 7:38 PM CDT
I am praying for Heather right now and will continue to. I will keep you in my thoughts as well Heidi.
www.thelilyfoundation.org
Sarah Kordis <SMKLCR@hotmail.com>
Fort Collins, CO USA - Thursday, September 8, 2005 5:23 PM CDT
Love Always
My Loving Dad's Site <brurka@shaw.ca>EDMONTON,ALBERTA CANADA, - Thursday, September 8, 2005 3:35 PM CDT
Glad to hear Heather is having the vent turned down a "little bit". Worried about her all night. Hope you got some rest last night Heidi. We are still up on 7 medical if you need anything.Thinking of you all!
Kerry ~ www.caringbridge.org/ma/haileybrenna
Plymouth, MA - Thursday, September 8, 2005 2:44 PM CDT
I'll be praying for your little girl every day.
Jeanne McSweeney <jmgagne@mintz.com>
Bridgewater, MA - Thursday, September 8, 2005 9:35 AM CDT
Your darling girl is in my thoughts and prayers. I pray that God keeps his hands on her while she rests.
Jennifer and Zachary
Bremerton, Wa - Thursday, September 8, 2005 8:59 AM CDT
I ache at the site of your precious baby so sick in the PICU. It brings back memories of my baby in the PICU and on a vent for 7 days from menningits complications. Trust me at those times you know how to pray. I will pray as hard for Heather as I did for my own, God works miracles. (I am following Heather's updates through Eli's web page).
Prayers
Kris
Kris Vejvoda <kristine_vejvoda@csgsystems.com>
Omaha, NE 68128 - Thursday, September 8, 2005 7:48 AM CDT
I saw on Eli's page Heather is having lots of problems. Please know I will be praying for her and will add her name to our prayer list. God be with you all.
Regards-
Ann Eide (www.heartbeatsformito.org) <HFMito@cableone.net >
Columbus, MS - Thursday, September 8, 2005 1:25 AM CDT
Hi Heidi,
So sorry to hear that little Heather is not doing well at all. She is always in my prayers. I hope and pray that she will get better real soon. I pray that God will wrap his loving arms around her and give her the strength she needs to fight this. Please know that you are close to my heart, in my thoughts and always in my prayers.
I will be arriving Sunday Sept.11th. Will be staying at the Doubletree for that night. Admit to NEMC on Monday Sept.12th. I will try to see you guys before I get admitted.
Love and HUgs,
Ann-Marie <peetie@ptd.net>
- Thursday, September 8, 2005 0:15 AM CDT
Hi Heidi,
So sorry to hear that little Heather is not doing well at all. She is always in my prayers. I hope and pray that she will get better real soon. I pray that God will wrap his loving arms around her and give her the strength she needs to fight this. Please know that you are close to my heart, in my thoughts and always in my prayers.
I will be arriving Sunday Sept.11th. Will be staying at the Doubletree for that night. Admit to NEMC on Monday Sept.12th. I will try to see you guys before I get admitted.
Love and HUgs,
Ann-Marie <peetie@ptd.net>
- Thursday, September 8, 2005 0:15 AM CDT
princess heather, hang in there kiddo and auntie Donna will be there soon! I know you are tired Heidi and I hope you will allow yourself some rest and recovery for yourself. Heather is in the best hands possible right now with Korson and NEMC nurses. I am praying for youand thinking of you often....we are almost home....well "almost" is relative! Nick and Katie, I hope you are enjoying school!!! do a good job, enjoy your friends and remember you are both loved alot!
Donna Thorell <iluvdizney2@adelphia.net www.caringbridge.org/ma/thorell_kids>
- Wednesday, September 7, 2005 9:45 PM CDT
Sending prayers along for your whole family . .this must be so difficult . .Lin is my cousin . .and she keeps me up to date on what is happening. Praying for your strength, faith and peace. Eileen
Eileen Riley <yelir9@aol.com>
Beverly, MA USA - Wednesday, September 7, 2005 9:14 PM CDT
Your in our thoughts and prayers everyday! May god bless you!
www.caringbridge.org/ga/rheanacarter
www.rheanacarter.com
heather <morh2gs@alltel.net>
winder, ga - Wednesday, September 7, 2005 9:09 PM CDT
Heather is is our prayers. I check in with you almost daily. She is a stong little fighter! God Bless you and your family. As a mother, I cannot imagine what you are going through. Stay strong for that sweet little girl!
Kelli <kj1021@aol.com>
Hampton, MN USA - Wednesday, September 7, 2005 2:48 PM CDT
Heather is in my prayers.
Tina & Lance(md/lance) <lancejrmommy@comcast.net>
- Wednesday, September 7, 2005 1:30 PM CDT
I am lifting you high in prayer today and always. May it be a good day and bring peace...
Ann "Eli's Mommy" <akurtz1974@msn.com>
Brighton, Co USA - Wednesday, September 7, 2005 12:26 AM CDT
Prayers are being said for your sweet Heather.
Melinda~~Angels on Earth~~ <melinda_isaac@hotmail.com>
Tampa, FL - Wednesday, September 7, 2005 11:41 AM CDT
So many prayers heading your way! Poor sweetheart. She is such a doll! I hate that she is any tiny bit of pain. Such a fighter too. Just keep fighting Heather! We are all thinking and praying for you!!!
Love,
Sara *Angels on Earth* <mthoroughman@verizon.net>
Seminole, FL - Wednesday, September 7, 2005 10:57 AM CDT
Heidi: We are up on 7 medical room 728 w/ Hailey. Andrew is here as well. Please call up and I will come down too see you.
Praying for you all!
Kerry~ www.caringbridge.org/ma/haileybrenna <kerry.tobin@verizon.net>
Plymouth, MA - Wednesday, September 7, 2005 10:23 AM CDT
Many prayers going to you!
Mandy (Angels on Earth)
mamatooryan
- Wednesday, September 7, 2005 10:22 AM CDT
Sending many prayers and thoughts for Heather!!!
Kari (Angels On Earth) <zfamily00@sbcglobal.net>
Wauwatosa, WI - Wednesday, September 7, 2005 10:13 AM CDT
Dear Heidi: Praying for your Heather and for you and your family, too. So sorry things are so horrible right now.
Cindy Cruz (from mito list) <rella19@verizon.net>
Edmonds, WA USA - Wednesday, September 7, 2005 10:09 AM CDT
Praying for Heather. Please let me know if you need anything at all. ((hugs))
Angela *angels on earth* -HEATHER GRACE
<alisonheathersmama@gmail.com>
natick, ma - Wednesday, September 7, 2005 10:07 AM CDT
SENDING MANY PRAYERS YOUR WAY FOR HEATHER AND YOUR FAMILY....SHE IS A BEAUTIFUL LITTLE GIRL...
VIVIAN
ALBANY, NY USA - Wednesday, September 7, 2005 9:18 AM CDT
I found you page through Eli's CB link, my prayers for your family and sweet Heather, may the good Lord give her comfort today and always and carry her family through this difficult struggle. She is a little doll and a fighter, our thoughts will be with you all.
Jeanne Strain <jstrain@fnni.com>
Omaha, NE - Wednesday, September 7, 2005 9:13 AM CDT
Keeping Heather held high in prayers today and always. I will place her on my church prayer chain and let a hundred more people pray for this special little girl.
I found out about Ms Heather through Eli Kurtz's mommy!!
God Bless you always!! (-;
Joan <joanski64@yahoo.com>
- Wednesday, September 7, 2005 7:59 AM CDT
Prayers and get well wishes for sweet Heather. I found your website through Eli's (Eli and his family are very close friends of mine). God Bless sweet Heather.
Kris
Kris Vejvoda <kristine_vejvoda@csgsystems.com>
Omaha, NE 68128 - Wednesday, September 7, 2005 7:34 AM CDT
Praying for your beautiful Heather!
Robin Brunet <robinb@neptune.on.ca>
Bradford, Ontario Canada - Wednesday, September 7, 2005 7:33 AM CDT
Please know that you are in our prayers...
Kris & Ellie, 3 years old, Mito - Leigh's (www.caringbridge.org/oh/ellie) <mkovalci@columbus.rr.com>
Powell, OH United States - Wednesday, September 7, 2005 7:23 AM CDT
Heidi,
I came here from Eli's site. My thoughts and prayers are with you. I pray that she is okay and that she pulls through and is better than ever. REALLY PRAYING MY HEART OUT FOR YOU ALL!!!!!!!!!!!!
STAY STRONG
KEEP THE FAITH
AND KEEP US UPDATED
Kristi <CubbieFankristi@aol.com>
- Wednesday, September 7, 2005 6:13 AM CDT
Heidi and Paul,
I'm praying for Heather, will send on your prayer request to friends. I"m so sorry to hear of the latest crisis.
Dawn <dawnand3dogs@charter.net>
Easthampton, MA - Wednesday, September 7, 2005 6:05 AM CDT
We again asked for prayers in our Church Sunday for you and Heather. You are both on our prayer list everyday. You have shown such great courage-all of you-Please kiss Petunia for us. love, Faith and Dick
Faith Borden <farjar54@aol.com>
- Wednesday, September 7, 2005 5:44 AM CDT
Thinking of you and yours.....((((((((((( Huggle ))))))))))
Diane <aspy@aol.com>
NY - Tuesday, September 6, 2005 9:03 PM CDT
Thinking of you all. Love to Heather!
Lin
Easthampton, MA USA - Tuesday, September 6, 2005 8:25 PM CDT
My goodness--do you get the two for the price of one special at NEMC?!! No family record setting of having the most amount of people in at one time!
Please tell Heidi that she AND Heather are in my prayers. I hope they both start feeling better soon.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, September 4, 2005 9:25 PM CDT
Paul, prayers for Heather and Heidi are coming your way every day. Hang in there. I hope Nicky and Katie have a good start to school. They will enjoy the routine and you will have a bit of a break I hope. I hope Heidi can come home soon and that Heather will be improving every day.
Dawn <dawnand3dogs@charter.net>
Easthampton, - Sunday, September 4, 2005 8:23 AM CDT
HI Paul,
Sounds like you have your hands full right now, thank goodness for grandparents!! Sorry to hear that Heidi is in NEMC and that her J tube fell out. I hope the infection is under control soon and she can get out of there.
Poor little Heather, I hope she is off the ventilator soon. and that her face and belly get back to normal. Keeping you and the whole family in my thoughts, close to my heart and in my prayers. All my Best!! Love and Hugs,
Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, September 3, 2005 9:54 PM CDT
My prayers continue for sweet Heather.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Thursday, September 1, 2005 11:12 PM CDT
Carolee and Alex are just riding by to say hello!
We are all storming heaven with prayers for Heather!
MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
- Thursday, September 1, 2005 9:58 PM CDT
well i'm glad little heather's nose is peaking through but so sorry that she is this ill. You two are awesome parents and I pray you continue to show the strength and fortitude you have shown for so long. praying for Heather as well that tomorrow brings improvement.
Anne J www.caringbridge.org/wi/zachsam
- Tuesday, August 30, 2005 10:53 PM CDT
Prayers and thoughts for you and your family
nancy and kathryn nill www.caringbridge.org/visit/kathrynnill
nancy nill <nln1960@yahoo.com>
commack, ny - Tuesday, August 30, 2005 6:29 AM CDT
Hi Heidi and Paul,
So sorry Heather is back in. It must feel like one thing gets under control and then something else happens to throw everything off balance again. Hoping that they figure out what is going on and how to fix it. When I had the SVC clot, they said if it had gotten worse before they found it, that my chest and face would have become swollen. Praying for all of you.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, August 28, 2005 2:04 PM CDT
sweet little Heather, I am praying for you. Hope the docs can find out what is wrong and why your beautiful face is swollen. Love and Hugs...Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, August 27, 2005 11:40 PM CDT
praying for you heather.....
Donna & Rod Thorell <iluvdizney2@adelphia.net www.caringbridge.org/ma/thorell_kids>
- Saturday, August 27, 2005 9:38 PM CDT
Heidi and Heather,
So happy to read that you are both home. It is so nice to know that your family is once again complete. Congratulations on the donated conversion Van. This is fantastic. You guys really needed one. Sorry to hear that the appt. for Heather opened up some topics that were held deep inside, it is always hard to address the life issues especially when it is our children. I hope and pray that you both continue to get better. I pray that the Lord will hold you close and I continue to keep you in my prayers.
Love and Hugs,
Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, August 24, 2005 11:35 PM CDT
Lots of prayers for Heather and family, glad she is home now and you are all together again. I hope the spunky side of Heather will be evident soon once again. Hang in there. Thanks for the update.
Dawn <dawnand3dogs@charter.net>
Easthampton, - Wednesday, August 24, 2005 9:14 PM CDT
welcome home princess....and glad to hear your family is finally complete again. Glad to hear things are finally coming around for all of you and that your housing and vehicle issues have been settled. Congrats!
Donna & Rod Thorell <iluvdizney2@adelphia.net www.caringbridge.org/ma/thorell_kids>
- Monday, August 22, 2005 10:20 PM CDT
Hi Heidi & family)
I am so happy that Heather is coming home tomorrow- YEAH!!!!!! Heidi- Glad you are home finally too! Its been a long summer for your family. I have been praying for all of you. Yes, please do call me. Would love to catch up with you
Hugs
Heather www.caringbridge.org/pa/heather <heatheres@enter.net>
- Sunday, August 21, 2005 7:13 PM CDT
Heidi,
Praying your recovery is still going well and you are getting back to norm.
Little princess,
I am thinking about you and praying your troubles are less this week.
God Bless
Visit Elijah's Page
Or Eli’s Angels
Ann <akurtz1974@msn.com>
Brighton, Co USA - Saturday, August 20, 2005 4:58 PM CDT
Hi, I'm so glad you guys got a donated w/c van! That's great. I'm glad that Heidi's home and recovering. Hope she feels better each day. I'm sure it's hard being away from Heather. I'm glad she'll be coming home soon. My prayers are with you all. Love, Alyssa
Alyssa <kbwillard118@netzero.com>
Hamburg, NY US - Friday, August 19, 2005 2:58 PM CDT
Hello:
We stopped by to say hello to Heather & Paul this morning, but Paul had stepped out of the room. Hope you are all doing well. Heidi: Hope you are feeling better & Heather is home with you soon!
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Friday, August 19, 2005 12:57 AM CDT
Just biking by to say hello!MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
- Thursday, August 18, 2005 9:04 AM CDT
Hello: Happy to hear Heidi is home. The van sounds great and what a relief that it was donated. Hope that Heathers line is okay and nothing needs to be done.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Sunday, August 14, 2005 6:09 PM CDT
heidi, we are thinking of you often and pray you fully recover real soon, and that you are home with the family real soon. glad to hear heather is still herself! she is so amazing, must have gotten the resilience from mom!
jackie and joel and baby rafael <aeonflux4444@yahoo.com>
brooklyn, ny - Wednesday, August 10, 2005 9:07 PM CDT
Hi Heidi,
Sorry to hear that you gut is taking its time waking up.!! I hope you get better soon. I am glad to hear that Heather is doing well, and I totally understand your feelings of sadness and relief when it comes to her not understanding how long someone is gone. It has it good points and its bad points.
I will try to give you a call this week. I have to go to the ER and get a new stitch put in my PICC, it fell out. Take care and know that I am praying for you and the family. God Bless You. Love and Hugs,
Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, August 8, 2005 0:39 AM CDT
Heidi, just checking in. I'm glad you are through the G/J surgery. My gut took an enormously long time to wake up too :o( Keeping assorted body parts crossed that you can all be home together SOON!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, August 7, 2005 10:20 AM CDT
Praying the healing continues and the whole family can be back together real soon.
Eli’s Angels is a non-profit for children affected with Mitochondrial or metabolic illnesses
Elijah's Page
Ann <akurtz1974@msn.com>
Brightosn, Co USA - Saturday, August 6, 2005 8:16 PM CDT
We are back from Florida and are just popping in to say Hi!
Alex thought that Heather would like a picture of the Princesses that we met at Disney.
MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
Williamstown, VT - Friday, August 5, 2005 6:21 AM CDT
Hi,
Thank you Paul for the updates on both Heidi and Heather.
Heidi, it was so nice talking to you on the phone the other day, you sounded very chipper for just having gone through a G and J tube surgery. I hope the J feeds are going as well as can be and that you are getting stronger with each day. I am holding you and your precious family close to my heart and keeping you all in my prayers.
Heather: you are such a sweet little girl, I hope that you are having a good time at "Camp" and aren't missing anyone. I pray daily that you guys will get the proper nursing that you need and that Heather and Heidi will be home soon so that your family will be all together once again. God Bless you!!! Love and Hugs,
Ann-Marie McDonald www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, August 2, 2005 10:55 PM CDT
We continue to pray for all of you-you have displayed both courage and strength through each crisis-hug Katie and Nicky for us-we love you-Faith and Dick
Faith Borden <farjar54@aol.com>
- Tuesday, August 2, 2005 7:45 AM CDT
Paul,
Thank you for the updates on both Heidi and Heather. Truly, I am praying for your family.
May God continue to give you strength.
SH <shedekold@aol.com>
- Tuesday, August 2, 2005 0:34 AM CDT
Just stopping by to let you know I’m thinking of you! I'm so sorry you're all going through a tough time right now, I really hope things start improving for everyone soon. Wishing you and your family all the best!
Diana <dianasinger06@yahoo.com>
Dallas, TX - Thursday, July 28, 2005 0:17 AM CDT
Your family is in our prayers.
We are thinking of you; praying for you, caring for you.
Sheila DeKOld <SHEDEKOLD@aol.com>
Floyds Knobs, IN USA - Wednesday, July 27, 2005 11:30 PM CDT
Just wanted to let you know we are thinking about you.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Wednesday, July 27, 2005 2:46 PM CDT
I just wanted to let you know that people all over the country are thinking of you and sweet Heather. You are doing amazing and I think it's a shame that the nursing companies can't get their acts together. I hope everything can get settled soon.
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Monday, July 25, 2005 1:16 PM CDT
I'm visiting for the 1st time, and have just read Heather's journal. You are both amazing parents. Your love and devotion to your daughter is extraordinary. She is blessed to have you, along with her loving siblings. I'm going to be praying that the nursing issues can be resolved, so that Heather can be back home.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Saturday, July 23, 2005 11:53 PM CDT
Hello:
Just wanted to let you know I have been checking in on you all & thinking about you everyday. Hope you can get Heather's homecare worked out really soon.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, ma - Friday, July 22, 2005 4:47 PM CDT
heidi and paul, we are so sorry these times have hit you hard. the docs are right- you guys have done amazing work giving her the best life possible, that INCLUDES sending her to a place that can take care of her when you are unable to. i pray that heidi and heather are doing better and that the nursing situation gets sorted out real soon...
jackie and joel and baby rafael www.caringbridge.org/visit/rafael <aeonflux4444@yahoo.com>
brooklyn, ny - Thursday, July 21, 2005 10:42 PM CDT
Hello there! Sorry to have been MIA for so long. Final exams are over so I should be better about signing in, at least until school starts again in August!
Your post just burns me up! TWELVE HOURS? That is just horrible. I can't even imagine. I do know what it is like to try to get a PCA though, and the good ones are slim pickins. We will be praying that Heather is home soon WITH nursing care!
We leave for vacation to Disney World on Thursday, so watch your email for "postcard" from Alex to Heather!
MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
Williamstown, VT - Tuesday, July 19, 2005 3:19 PM CDT
No doubt this monster mito sucks and that the current system in our country is not set up to handle our needs. I'm sorry you all are going through this right now. Please know you are in my thoughts and prayers.
Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Tuesday, July 19, 2005 9:17 AM CDT
Hey guys... I sure wish you lived on the east coast of this state! Cause I'd come help you in a heartbeat! Heather does need to be home with you, because all of you ARE the reason she is as happy and as healthy as she is right now! There is no doubt about that at all. I'm sure it will all work out, hopefully sooner rather than later for everyone's sake! Thinking about you always!
Heather ( from the floating) <hvallatini@hotmail.com>
Braintree, Ma - Tuesday, July 19, 2005 8:46 AM CDT
All I can say is I am not shocked and it is upsetting me to think you are all missing a piece of your family right now. It is not right. Yes, they should walk in your shoes. A few hours would do. There is no one who can deny Heather is as good as she is because you as a family have kept her that way.
Heidi when things settle down for you medically, and you get your tests done and everything is complete, your princess will be home.
I told you I would walk with you through this junk...
I sat with you at your side while you were out of it, what makes you think I am going to stop now! I am committed for the long haul....
Heather will be home, and your family will be complete again. REST for now and get ready for MGH...
Love to all of you!!
Donna Thorell <iluvdizney2@adelphia.net www.caringbridge.or/ma/thorell_kids>
- Monday, July 18, 2005 11:08 PM CDT
thinking of you. yes, they should walk a day hand in hand with you. i'm so sorry you have to deal with such a lack of compassion.
Anne - Zach and Sam's mom
- Monday, July 18, 2005 9:24 PM CDT
Just a short not to say HELLO!!! I am sorry I haven’t signed in a long time, but know we have been thinking about and praying for you! Love, hugs, thoughts, and prayers~~
Caden’s Connections
Vicki & Caden Williams <vicki.williams@netxv.net>
San Angelo, TX - Sunday, July 17, 2005 3:46 PM CDT
Just wanted to say hi and let you know we are thinking about you.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Saturday, July 16, 2005 9:30 AM CDT
I am praying that the little princess can get home soon. Oh and you can write a book whenever you feel like it. I always feel better just getting stuff out of my head. For you right now with so much to worry about write a book or two.
God Bless and I hope the weekend goes well, maybe even a princess will get to come home to her castle.
Relay for Life-Duluth
Elijah's Page
Eli’s Angels is a non-profit for children affected with Mitochondrial or metabolic illnesses
Ann <akurtz1974@msn.com>
Brighton, Co USA - Friday, July 15, 2005 12:49 AM CDT
I so hope Heather gets to rejoin her family at home soon. Hugs and prayers.
Lois (FOA)
NJ - Friday, July 15, 2005 7:49 AM CDT
Hi Heather!
You have such a cute smile in all your pictures! I hope you can go home soon!
Jenn B. (AoE) <mjmb2004@gmail.com>
Fresno, CA - Friday, July 15, 2005 0:31 AM CDT
Heidi and Heather,
So sorry to hear about all the nursing problems. There seems to be nursing shortages all over the country. I hope that Heather can come home soon from Camp. Please know that I am keeping you all in my prayers and in my heart. Love and Hugs,
Ann-Marie McDonald www.caringbridge.org/pa/annmarie <peetie@ptd.net>
Palmerton, Pa - Thursday, July 14, 2005 11:36 PM CDT
I hope Heather can come home soon.
Tina & Lance(caringbridge.org/md/lance) <lancejrmommy@comcast.net>
- Thursday, July 14, 2005 7:42 PM CDT
Heather you are a cutie. You will be in my thoughts and prayers.
Angie -Angels On Earth <atschaaf@comcast.net>
Port Huron, Mi - Thursday, July 14, 2005 7:31 PM CDT
What a cutie you are. Sorry to hear that you received bad news and I am praying that you receive some home health care nurses soon. Know that I will be thinking of you.
Mandy (Angels on Earth)
mamatooryan
- Thursday, July 14, 2005 3:14 PM CDT
Hi Paul and Heidi,
I'm sorry to hear that Heather has to go to camp, but it sounds like an option that will give you a breathing space to find more nursing. Truely the situation is very rough, finding home health services, and it needs to change. I hope the time will pass quickly and Heather can be home soon with the support you need.
Dawn
Dawn Smith <dawnand3dogs@charter.net>
Easthampton, MA US - Thursday, July 14, 2005 5:52 AM CDT
I am so sorry to hear the latest news...except of course cutie Heather walking again! So cute!!! I wish she could be home w/ you all too!! It is so sad to have family apart from each other. I pray that the time goes by quickly until you are all together again!!
Love,
Sara *Angels on Earth* <mthoroughman@verizon.net>
Seminole, FL - Wednesday, July 13, 2005 12:55 AM CDT
I'm glad to hear Heather's feeling better; I'm sorry though that she can't come home right away. I hope you're able to get the nursing issue resolved; it's unfortunate that there's always such a lot of red tape and such associated with getting in-home care. I hope Heather continues to feel well and that she does well with her stay in the hospital.
Denise Ward <deniward@shaw.ca>
Winnipeg, Canada - Wednesday, July 13, 2005 1:30 AM CDT
Just wanted to let you know that Heather is adorable! What a cutie!! I will be keeping her and your family in my prayers.
Melinda~~Angels on Earth~~ <melinda_isaac@hotmail.com>
Tampa, FL - Tuesday, July 12, 2005 12:19 AM CDT
Your little Heather is adorable. I look forward to checking in on her. I hope you get the issue with her lungs resolved soon. I will keep her in my prayers.
Kris Herbst *Angels on Earth* <kris@ercolina-usa.com>
Davenport, IA - Tuesday, July 12, 2005 8:43 AM CDT
Hi Heather - Sorry to hear that your lungs are a bit crackly lately. I hope that they figure that out for you soon. You certainly are a cutie and I'll be thinking of you!! Here are some hugs from Wisconsin for you. {{{{}}}}
Kari (Angels On Earth) <zfamily00@hotmail.com>
Wauwatosa, WI - Tuesday, July 12, 2005 8:34 AM CDT
First, your little one is so adorable. What a smile. I learned of your site from a group I belong to, Angels on Earth. I look forward to "watching" Heather's progress and of course, will keep her in my prayers.
K-C <kellychristine.day@citigroup.com>
Westchester, NY - Tuesday, July 12, 2005 8:23 AM CDT
Just wanted to drop in and say HI!!! Heather sounds like my little Nate. Please know we are praying for you guys!!
Ashlie~Angels on Earth and Nate (www.caringbridge.org/tn/nate) <luvourkids2002@yahoo.com>
Columbia, Tn - Tuesday, July 12, 2005 8:15 AM CDT
I am new to your site and just wanted you to know that Heather is in my prayers. She is a cutie. I hope she gets to feeling better soon!
Teryl Stroud <teryls@south-west.net>
Wylie, TX 75098 - Tuesday, July 12, 2005 6:13 AM CDT
Sorry to hear Heather hasnt been feeling good. Poor thing. I hope her lungs sound better quick for you. If you need anything at all, even some company... I am close by.
Angela ~Angels on Earth *- -HEATHER GRACE
<alisonheathersmama@gmail.com>
natick, Massachusetts - Monday, July 11, 2005 9:31 PM CDT
Hi Heidi and Heather,
Sorry to hear that you are back in Club Med. I hope Heather will be able to keep her line and that it isn't infected. Just wanted to stop by and let you all know that I am thinking of you and praying for all of you. Stay Strong!! Love and Hugs,
Ann-Marie McDonald www.caringbridge.org/pa/annmarie <peetie@ptd.net>
Palmerton, Pa. - Saturday, July 9, 2005 5:08 PM CDT
It was so good talking with you Heidi yesterday-not a day goes by that you all are not in our thoughts and prayers. It doesn't rain-it pours as the old saying goes. Love, Dick and Faith
Faith Borden <farjar54@aol.com>
- Friday, July 8, 2005 4:36 AM CDT
Happy 4th of July!! Hope you have a great day that is filled with fun! I’m thinking of you always and hoping you’re doing well- so glad to hear you are out of your "time share" and at home!
Diana's Page <dianasinger06@yahoo.com>
Dallas, TX - Monday, July 4, 2005 10:38 AM CDT
Love, MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
- Monday, July 4, 2005 7:30 AM CDT
I found your website through another website and wanted to say hi. Have a nice weekend.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Saturday, July 2, 2005 9:18 AM CDT
Hoping that Heather is getting better!
Alex is sending Heather a hug!
Love, MaryBeth & Alex
marybeth <marybethlefevre@aol.com>
- Thursday, June 30, 2005 6:29 PM CDT
Here is a hug from Alex to Heather!
Hope Heather gets home soon!
Love, MaryBeth & Alex
MaryBeth <marybethlefevre@aol.com>
Williamstown, VT - Sunday, June 26, 2005 7:23 AM CDT
Just wanted to stop by to say hi and tell you that I’m thinking of you! Hope you have a great weekend!
Diana's Page <dianasinger06@yahoo.com>
Dallas, TX - Friday, June 24, 2005 11:47 AM CDT
i don't think there is ever a calm day at your house. sorry to hear about heather's G tube but glad she seems to be doing better. hope the peropheral lines hold up for you heidi until you can decide something else.
Anne
Waukesha, WI - Wednesday, June 22, 2005 2:25 PM CDT
I'm sorry that Heather's line had to be removed because of a clot. That's one of my biggest fears with Emily's broviac. Your website is great, I will be back to check on Heather soon.
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Wednesday, June 22, 2005 1:04 PM CDT
Hello, we found your site through Eli’s Angels and wanted to say Hi. We love to make new friends! We hope you come visit us at http://www3.caringbridge.org/vt/alex/
We are praying for all of you and especially for Heather to get better soon!
Alex and MaryBeth
MaryBeth <marybethlefevre@aol.com>
Williamstown, VT - Sunday, June 19, 2005 9:28 AM CDT
sending you HUGS, heidi. we think your family is just AMAZING!!! tell heather she is even more amazing without all the "extra attention", and give her hugs from us too, ok? love,
jackie and joel and baby rafael www.caringbridge.org/ny/rafael <aeonflux4444@yahoo.com>
Brooklyn, ny - Thursday, June 16, 2005 10:57 PM CDT
Hi Heidi and Heather,
Thanks for visiting my CB site. Glad you like the flamingos. My sister-in-law decorated my hospital room last year for my birthday with them. It was a riot!
Heather is a real cutie and I'm sure a blessing! Hope you are all doing better soon.
Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Thursday, June 16, 2005 6:44 PM CDT
Praying for the whole family to feel better. I hope that you have since the last update.
Visit Elijah's Page
Or Eli’s Angels is a non-profit for children affected with Mitochondrial or metabolic illnesses
Ann <akurtz1974@msn. com>
Brighton, Co USA - Tuesday, June 14, 2005 10:23 PM CDT
Great PIC of Heather outdoors!!!!
New Heather fan club member.........D
Diane <aspy@aol.com>
NY - Tuesday, June 14, 2005 8:11 AM CDT
Hey Heidi,
I hope Baby Heather starts doing better.
Aunt Heather <HCDrieling@aol.com>
Maryville, TN - Sunday, June 12, 2005 11:49 PM CDT
Hi Heather,
You are one cute little girl! I will be praying for you and your family.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Sunday, June 12, 2005 7:55 PM CDT
I hope that the neurologist has some suggestions for you. It is a tough call about the meds. I also hope her chest clears out so Mommy can get some rest. Are you enjoying our sweltering heat? Yuck!
AngelaFOA/RA/Angels on Earth*- -HEATHER GRACE
<alisonheathersmama@gmail.com>
natick, Ma - Sunday, June 12, 2005 3:07 PM CDT
Hi Heather. Mommy visisted my siteand left your page address so i thought i would drop by and say hello. Heather is my sisters name too! i hope you get to play outside this week
pam(www.pamsstory.org) <sylteach@aol.com>
asheboro, nc - Saturday, June 11, 2005 6:35 PM CDT
Ok that was a really cute story. I bet everone had a good laugh over that one.
God Bless
Ann <akurtz1974@msn.com>
Brighton, CO USA - Wednesday, June 8, 2005 5:00 PM CDT
Glad Heather is home. Praying she has a quick recovery from her pnemonia and for strength and rest for all of you. She is so darn cute!
Sandra <kilpatrickfamily@earthlink.net www.caringbridge.org/fl/joshuakilpatrick>
- Monday, June 6, 2005 11:47 AM CDT
You are right that is a great picture of Heather. I am so glad that she had fun outside. I hear that adult diapers are the"in" fashion now, they work so much better than the supplements.(hee,hee,hee).
Joann <legeyt213@yahoo.com>
Housatonic, MA USA - Friday, June 3, 2005 5:47 PM CDT
You are right that is a great picture of Heather. I am so glad that she had fun outside. I hear that adult diapers are the"in" fashion now, they work so much better than the supplements.(hee,hee,hee).
Joann <legeyt213@yahoo.com>
Housatonic, MA USA - Friday, June 3, 2005 5:46 PM CDT
So happy to hear Heather is home! Thank you Paul for the keeping me posted about Heather via Hailey & Brenna's site. Hope things continue to go well. Thinking of you all.
Love~ Kerry, Hailey & Brenna
Plymouth, MA - Thursday, May 26, 2005 9:08 PM CDT
hey you know your ALWAYS in my prayers. i hope you guys stay strong. i hope you (heidi) feels better.
Cassie <all4Him426@yahoo.com>
Easthampton, MA United States - Thursday, May 26, 2005 10:21 AM CDT
Well first of all I am glad that you were able to celebrate your anniversary. Secondly, I am glad that Heather is at home and that she did well at Baystate. Mistakes are tough - especially when they are mistakes that actually hurt our children. We all have to deal with them in whatever way we feel best. I have found the best thing is to talk with whoever made it, go through the steps of what happenned and think about a safety measure that might prevent the same mistake from happenning again. We have had the pump = KVO rate before and what has helped catch it faster is requiring nurses to document the residual volume on the pump every 2 hours. That way there is a plan in place for assuring pumps are checked. We also document a before bed and immediately in the am check of the pump settings.
Glad Heather is doing better.
Anne J. (TPN List)
- Monday, May 23, 2005 7:27 PM CDT
all I can say is we are praying.
Donna and Rod Thorell www.caringbridge.org/ma/thorell_kids <iluvdizney2@adelphia.net>
- Sunday, May 22, 2005 7:10 PM CDT
Oh my that is hard to hear. I pray that she can bounce back quickly from this. She is heavy on my heart tonight.
God Bless
Ann <akurtz1974@msn.com>
Brighton, Co USA - Sunday, May 22, 2005 0:43 AM CDT
Hi Heather and Heidi! Thanks so much for visiting my page and signing my guestbook- it was great to hear from you! You sound like such an awesome girl (and daughter), and I love your picture with music therapy- it looks like you’re having lots of fun. Happy (belated) Anniversary to the parents- great to hear you had an enjoyable night with just the two of you! I am so sorry to hear about the TPN mishap- I hope everything goes well tonight and Heather can return home soon. Heather- I really hope you get to feeling better quickly; I’ll be sending good thoughts your way! Thanks again for visiting my page, and I will return soon to see how everything is going!
Diana www.caringbridge.org/tx/diana_s
Dallas, TX - Saturday, May 21, 2005 9:34 PM CDT
If you havent heard this today, I will say it now..."you are amazing!"
God Bless you for being a support, a friend, a journeyman, and inspiration.
Heather is beautiful and I am glad to be her friend! (and yours)
Donna and Rod Thorell www.caringbridge.org/ma/thorell_kids <iluvdizney2@adelphia.net>
carver, ma - Saturday, May 21, 2005 3:26 PM CDT
Heidi: Can I just say "you are AWESOME"!!! Really ~ you are great, I love you, I love how you always look at the good you have in your life and the things Heather "can do". I will NEVER forget when we were in the hallway on 7 medical one morning talking with another mom who was bummed over all the "can't and have not's in life" and you said "Heather is a really neat kid".
Heidi ~ you ROCK!! Have a great night out with Paul. You both deserve it!!
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Friday, May 20, 2005 10:36 PM CDT
Wow! The new photo is awesome. That kind of theropy is wonderful. Good for her. Congrats on the 10years. I hope you both have a good time OUT OF THE HOUSE. Your harp will be waiting for you when you get home.
God Bless
Ann <akurtz1974@msn.com>
Brighton, co USA - Friday, May 20, 2005 6:16 PM CDT
Thinking about you Princess....
God Bless
Elijah's Page
Ann <akurtz1974@msn.com>
Brighton, Co USA - Tuesday, May 17, 2005 4:44 PM CDT
Chester the cat and I just stopped in to say Hi. He's trying to hide in my lap from Toby the dog. Heather is such an adorable little girl. I love her picture, and I loved your journal entry, especially the part about the people who are willing to listen to the "long" story. Stay strong and know there are people out there who will sit through the long story and share your pain and joy.
Peace & love,
Cyndy, aunt to Ari, with Leigh's
Caringbridge site - ky/ari
Cyndy Mitchell <cyndykayet@yahoo.com>
Louisville, KY USA - Saturday, May 14, 2005 9:08 AM CDT
Chester the cat and I just stopped in to say Hi. He's trying to hide in my lap from Toby the dog. Heather is such an adorable little girl. I love her picture, and I loved your journal entry, especially the part about the people who are willing to listen to the "long" story. Stay strong and know there are people out there who will sit through the long story and share your pain and joy.
Peace & love,
Cyndy, aunt to Ari, with Leigh's
Caringbridge site - ky/ari
Cyndy Mitchell <cyndykayet@yahoo.com>
Louisville, KY USA - Saturday, May 14, 2005 9:07 AM CDT
i often tell the "very long" story to many who are not interested, just so they will shut up and go away. it works! LOL! btw- yes God is in charge, but you are doing much more than a "temp" job- you are doing Gods work as Heather and Nick's mom, as well as Paul's wife, and doing a darn good job!!! even when it is time for one of you to go back to God, your marks are here forever, DONT forget that!!!
jackie and joel and baby rafael www.caringbridge.org/ny/rafael <aeonflux4444@yahoo.com>
Brooklyn, ny - Monday, May 9, 2005 8:38 PM CDT
I will sit for the long story....gladly. I am here to listen, or lean on if you need it. Don't forget that.
Donna Thorell <iluvdizney2@adelphia.net www.caringbridge.or/ma/thorell_kids>
- Monday, May 9, 2005 6:29 PM CDT
i'm glad that you are all home and hope you stay there. Take care of yourself if you can - easier said than done I know.
Anne -TPN List
- Thursday, May 5, 2005 1:36 PM CDT
hi! its been a bit since we stopped by, i have no good excuse for this, but we do think of you all the time! :) so happy heather has been staying out of the hospital (no we don't count elective visits)...and you too! so excited for you for the new bed! i hope heather likes her new big girl bed! what a step!
jackie and joel and baby rafael <aeonflux4444@yahoo.com www.caringbridge.org/ny/rafael>
brooklyn, ny - Thursday, May 5, 2005 1:13 AM CDT
Hi,
Just passing through.
My girl has Leigh desise an we live in Iceland.
www.barnaland.is/barn/6941
God bless you all,
Heidi and Beinta Maria
Heidi Didriksen <hd@hn.is>
Reykjavík, Iceland - Wednesday, May 4, 2005 7:18 AM CDT
Hurray for POOP! Funny how important the simple things seem to some of us, hmm?
Sending you lots of hugs..
Heidi and the Idaho gang
- Monday, May 2, 2005 7:59 AM CDT
Oh I feel for the little princess. Eli finally got two poops out today after 8days. Poor kidos. I pray she feels better and has a good weekend.
Ann (Eli's Mommy) <akurtz1974@msn.com>
Brighton, Co USA - Saturday, April 23, 2005 0:25 AM CDT
we LOVE the new photo- it is SO expressive and cute!!! even though this new line will be very inconvenient (heck, i find 10 hours a day inconvenient...thanks for the new perspective) it will last a long time (i have a special feeling about it...) and she is HOME where you can all enjoy each other!!! great news on the crib too, we are using a crib from the 1970's that is slightly higher up that a regular crib. it really helps, and you deserve all the conveniences you can have. she is such a miracle, you guys are just amazing with her!!!
jackie and joel and baby rafael www.caringbridge.org/ny/rafael <aeonflux4444@yahoo.com>
Brooklyn, ny - Tuesday, April 19, 2005 9:38 PM CDT
Thinking about you sweetie.
God Bless and you have a GOOD day.
Ann <akurt1974@msn.com>
Brighton, CO USA - Monday, April 18, 2005 1:36 AM CDT
hope the line placement went well today. my boys are also incredibly responsive to oxygen - their BUN and creatinine levels were/are basically down 50% or even more once on continuous oxygen. the theory was high pulmonary artery pressure and O2 would ofcourse make a huge difference in that case. sam's cvp went from 18 to 9 - it was simply remarkable! I'm glad you are seeing such good things too.
Anne - TPN List
- Friday, April 15, 2005 10:15 PM CDT
Hi Heidi...Thinking of you all and was happy to read that things are mostly good with Heather. Such a cutie!!!!
Your friend,
Candy
Candace Lynde <clynde@servicenetinc.org>
- Thursday, April 14, 2005 3:10 PM CDT
I'm glad to hear that you got to go out and enjoy the weather. It was a beautiful weekend! I'm sorry to hear that you are now having health problems too. Please know that you're all in my prayers.
Angela- -HEATHER GRACE
<angembal@yahoo.com>
Natick, MA - Monday, April 11, 2005 9:04 AM CDT
GO GO GO Heather!
Just a thought... seeing how you have the O2 around her ears and under her chin... sean found it easier to have it over the ears and behind his head instead, didnt need the stickers on his face once he got used to it as his ears held it in place....
hugs, Heidi and the Idaho gang
- Friday, April 8, 2005 4:22 AM CDT
just wanted to say hi and let you know you are in our thoughts and prayers.
Jaime www.caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, April 3, 2005 1:22 PM CDT
Thanks for signing in Logan's guestbook!
Heather is such a cutie pie!!!
I hope that she can continue with the nasal cannulas and not cpap. We are in the same situation with Logan right now. I am praying that cpap is not necessary. We have a hard enough time as it is, and he has been on O2 mostly his whole life.
I will keep up with Heather and you with your recent health issues. Take care and God Bless your wonderful family. You guys are strong people and God knew what he was doing when he chose you to be Heathers parents!
I love the Quote from Mother Teresa that you used. I feel
the exact same way sometimes.
Kyla and Logan <Kyla.Byard@kylottery.com>
Bowling Green, KY USA - Friday, April 1, 2005 8:52 AM CST
Thinking of you tonight Heather. I know it sucks carrying around those tanks. We are carrying around a 45pd one now and it's no fun. Heather is always in my prayers.
Tina & Lance www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Thursday, March 31, 2005 8:15 PM CST
Here to CHEER you on--praying for you as you learn and adjust to everything--and here is to HOME.
Thinking of you--P.S. LOVE THE PICTURE!
GO HEATHER--TWO is YOU!
Sheila (David and Olivia's Mama)
www.caringbridge.org/in/oliviablinndekold, - Thursday, March 31, 2005 3:08 AM CST
What a wonderful picture of Heather. We send you big hugs!It is nice to Heather feeling well.We pray for you daily!
Love and God bless,
Brenda
www2.caringbridge.ort/ma/cassie
Brenda <btw3798@charter.net>
Easthampton, MA usa - Friday, March 25, 2005 8:29 AM CST
YEAH!!!!!! That is the greatest update you have made in weeks Paul!! Hope you are all enjoying some family fun.
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Tuesday, March 22, 2005 7:29 PM CST
I am glad to hear that you are home! Please know that Heather is in our daily thoughts.
Angela- -HEATHER GRACE
Natick, MA - Tuesday, March 22, 2005 9:23 AM CST
Hi Heather!
Just found your site and wanted to say hi! :) Glad to hear that you're home! :)
~Joanne’s Corner~
With love,
Joanne and the Dream Team
~Bridge of Dreams ~
Joanne <joanne173@gmail.com>
- Tuesday, March 22, 2005 5:33 AM CST
Hello: Hope you are all able to be home together this weekend. Heather we missed seeing you awake yesterday, but I know you were resting up and getting better to get out of there.
Thanks for the update Paul (its about time!! ha, ha).
PS: who's on the phone with Heidi now? I am trying to call!
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Thursday, March 17, 2005 3:52 PM CST
Eli’s Angels is a non-profit for children affected with Mitochondrial or metabolic illnesses
Praying the little princess feels better soon and can come home.
God Bless
Ann <akurtz1974@msn.com>
Brighton, Co USA - Tuesday, March 15, 2005 10:06 PM CST
we've been thinking of you!!!
jackie and joel and baby rafael <aeonflux4444@yahoo.com>
brooklyn, ny - Monday, March 14, 2005 10:29 PM CST
Heidi,Paul and Family,
Our thoughts and prayers are with you daily!Hope Heather is able to come home soon! Love The Ouellettes
Jacquelyn Ouellette <jcjc@peoplepc.com>
Easthampton, MA USA - Monday, March 14, 2005 10:15 AM CST
Sending lots of thoughts and prayers to you all. Get well soon Heather!
Caden's Connections
Vicki & Caden <vicki.williams@netxv.net>
San Angelo , TX - Thursday, March 10, 2005 2:25 PM CST
Please know that I am keeping your sweet Heather in my daily thoughts and prayers. I am praying that she starts feeling better quickly, poor sweet girl. Please let me know if there is anything you need or I can do for you.
Angela- -HEATHER GRACE
<angembal@yahoo.com>
Natick, MA - Tuesday, March 8, 2005 8:36 AM CST
oh NO!!! at least if they know it is fungal, maybe they can direct the drugs to be more specific in fighting it? we will have to have a talk with heather about "behaving", at least enough to get out of there. preferably, for a full recovery. SOON!!!
jackie and joel and baby rafael <aeonflux4444@yahoo.com>
Brooklyn, ny - Saturday, March 5, 2005 10:13 PM CST
Angela recruited me too! I'm so sorry to hear about your little angel. I hope they figure out the problem very soon and she starts feeling better! My thoughts and prayers are with you!
Sarah
Sarah (New England FoA) <spra4321@hotmail.com>
Lakeville, MA - Thursday, March 3, 2005 6:46 PM CST
Hi! I got your link from Angela too ;)
I just wanted to let you know I am sending lots of hugs & prayers your way for little Heather. I hope you get some answers soon and that she is feeling much better soon too.
xoxoxoxoxo
Mel (New England Friends of Allie) <mschultz@i-sect.net>
Bristol, CT USA - Thursday, March 3, 2005 11:48 AM CST
Hi - Angela (Heather Grace's mom) gave me your Caring Bridge link so I could stop by and check on little Heather. Poor girl! I hope she is feeling better soon. Thinking of you all.
Tracey (New England FoA) <robinsont@bpsmail.org>
Warwick, RI - Wednesday, March 2, 2005 6:18 PM CST
I hope that the Drs find out what is wrong so sweet Heather can get homw soon. poor girl. Please know that you are in my thoughts and prayers. Please email me if there's anything I can do to help.
Angela- -HEATHER GRACE
<angembal@yahoo.com>
natick, ma - Wednesday, March 2, 2005 5:52 PM CST
Thinking of you I hope Heather is feeling better. If you need anything give me a call we have a few appts at NEMC this week and next. I will give you a call in the next couple days. Hugs to Heidi and Heather!
Love,
Heidi and Lexi
Heidi Simoes <Lexicam24@cox.net>
Johnston, RI USA - Tuesday, March 1, 2005 2:43 PM CST
LOVE Heathers new picture!!!! She is so beautiful and the smile on her face is just too cute. So happy that you all had a nice week & were able to stay home to have some fun together.
My cousin goes to the Perkins School. Hope you have a quiet week. We have 3 days at NEMC next week so if you are going to be there let me know and maybe we can meet up.
Hi Nick & Katie: Have fun in the snow tomorrow!!!
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Monday, February 28, 2005 7:59 PM CST
I am so glad to read that you are home! I have been reading on Heather for a while now but never stopped to sign. The pictures on your site are just wonderful .. you have such a beautiful family!
Sara and ~Emily~ <waffle13@sbcglobal.net>
Southern California, - Monday, February 28, 2005 11:16 AM CST
Heidi, Paul & the gang: Glad you are all home now and made it through all the appointments mixed in with the admission. It was nice to be able to meet Paul & Nick finally. I just can't get over Nick ~ he is so cute, fun to talk to and so polite, he's just a doll.
Wish I could have spent sometime with Heather during our admission together, but I didn't want to chance it since Brenna had a fever. Hope you are doing well at home & will have some quiet this week (is there such a thing??).
Love~ Kerry, Hailey & Brenna <kerry.tobin@verizon.net>
Plymouth, MA - Monday, February 21, 2005 8:03 PM CST
Hi Heidi,
SO glad you guys are HOME! Way to go, Heather! Hope things stay stable with Heather. I am so sorry about the issues with her vision. It seems like it's just one issue after another... I hope you guys get a break soon. Glad your endocrinologist is starting to treat you for your diabetes. I hope YOU feel better too!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, February 20, 2005 10:42 PM CST
hooray to being HOME, even if it is hard getting back on a schedule (or making up a new one), we are so happy you have all the comforts of home about you and that heather is doing much better. we'll pray things keep getting better, both for her AND for you!
jackie and joel and baby rafael <aeonflux4444@yahoo.com>
brooklyn, ny - Sunday, February 20, 2005 9:12 PM CST
Heather is a cutie. I wanted to stop by. I am a friend of Malisa's and have heard about her TPN friends. I also have mito. I think I have seen you post on the Mitoldies group. I haven't been posting much, but welcome! My thoughts and prayers are with you and your family right now.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
Cedar Rapids, IA - Sunday, February 20, 2005 10:02 AM CST
What a cutie your Heather is. I hope her g-tube issues resolve soon, and she gets to come home. I will check back soon.
Aimee <knbsmom2002@yahoo.com>
MA - Saturday, February 19, 2005 9:35 PM CST
Angela- -HEATHER GRACE
<angembal@yahoo.com>
ma - Sunday, February 13, 2005 9:02 PM CST
I am praying her tube area clears up.
God Bless
Visit Elijah's Page
Or Eli’s Angels non-profit for children affected with Mitochondrial or metabolic illnesses
Ann <akurtz1974@msn.com>
Brighton, Co USA - Saturday, February 12, 2005 8:14 PM CST
So glad that Heather is on the road to feeling better. I thought so much of you guys in the last few days as Sam had an episode of losing all of his vision. I was terrified although it did not last - it made me realize (although of course not fully) how terrifying it must feel to be witnessing Heather's visual changes on a day to day basis.
I am so glad Katie had a little special something on her birthday. Happy Birthday katie!
Anne - www.caringbridge.org/wi/zachsam <ajuhlmann@wi.rr.com>
- Friday, February 11, 2005 9:15 PM CST
Hey you guys! I am so sorry that I haven’t signed in a while, but know that I have been flying by every few days. Seems like everything has been a whirlwind lately! Hope everything goes better with the new line. I just want you to know that I have been thinking about you all and praying! I hope everyone has a great week! It’s not long until Valentine’s Day……Sending lots of love, hugs, thoughts, and prayers to you all!!!
Caden’s Connections
Vicki & Caden Williams <vicki.williams@netxv.net>
San Angelo, TX - Wednesday, February 9, 2005 2:28 PM CST
Hey Baby Heather! I hope you are doing better. I also hope you liked the little heart I made for you. Maybe I'll get a chance to make you something else.
Aunt Heather <HCDrieling@aol.com>
Alcoa, TN - Monday, February 7, 2005 2:30 AM CST
((((((Heather)))))) hoping you have a GOOD day today. You've been heavy on my heart and want you to know we are praying for your WHOLE family.
With care--
Sheila (TPNsupport)
- Saturday, February 5, 2005 2:29 AM CST
Heidi and Paul - So relieved that Heather is out of the PICU and feeling better. What a little tropper. Must be from her parents -you guys are awesome. I know it is harder than either of you let on but I love your spirit - it shines through in what you both write on this site. Hope katie's IEP went well.
Anne (TPN list) www.caringbridge.org/wi/zachsam
- Friday, February 4, 2005 8:24 PM CST
Hi Paul,
Thanks so much for updating. Please let Heidi know that she and Heather are in my prayers. I am glad to hear that she may be moving to the floor pretty soon. Sounds like she's moving in the right direction...UPSTAIRS! Keep the good news coming!
Malisa <maliibear@aol.com www.caringbridge.org/pa/malisa>
- Friday, February 4, 2005 2:28 PM CST
Praying for sweet little Heather. Please let us know if ther's anything we can do for you.
Angela- -HEATHER GRACE
Natick, ma - Thursday, February 3, 2005 1:28 PM CST
hope you do better soon baby heather. it was nice that i was able to see you last month and that you were feeling well when i was there.
Aunt Heather <HCDrieling@aol.com>
maryville, tn - Thursday, February 3, 2005 8:27 AM CST
Stopping by to let you know your family is in my thoughts and prayers! Hope you are all well.
Angela- -HEATHER GRACE
<angembal@yahoo.com>
natick, ma - Sunday, January 30, 2005 7:31 PM CST
Heidi & Paul: Wonderful site. Worked in Spec. Ed. for 18 yrs. so I understand your "dilema" with Heather. My prayers and wishes to all of you. Linda
Linda Deemer <rose52yellow@yahoo.com>
Hackettstown, NJ US - Sunday, January 30, 2005 8:23 AM CST
Hoping for NO infection and that things start "working" again! I bet you guys will get it all figured out; it will just take some time. Sending lots of hugs & prayers~
Caden's Connections
Vicki & Caden <vicki.williams@netxv.net>
San Angelo, TX - Wednesday, January 26, 2005 8:04 PM CST
Hi Heidi,
So many things going on for you guys lately. I think about Heather often and wonder how she's doing. I missed not getting to meet you last month, but am glad to hear you've managed to stay out of NEMC lately. Hope you guys are enjoying the snow!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, January 23, 2005 2:26 PM CST
hi heather i love you
nicholas <nickyboy1997@aol.com>
easthampton, ma usa - Sunday, January 23, 2005 9:07 AM CST
What an update...So much information
I pray you all have a nice weekend. Oh and I really like the new photo. What a cute princess.
God Bless
Eli’s Angels non-profit for children affected by mitochondrial/metabolic diseases
or visit Elijah's Page
Ann <akurtz1974@msn.com>
Brighton, Co USA - Friday, January 21, 2005 1:22 AM CST
Hi everyone! I'm some glad to hear that Heather is doing so well lately. It's been a while since we've seen her, but that's a very good thing. Good luck with the insurance battles, I know they are a pain. Enjoy being home!!!
Heather, nurse from floating <hvallatini@hotmail.com>
braintree, ma 02184 - Thursday, January 20, 2005 10:42 AM CST
hooray! so happy to hear that heather is doing well at home, and so are her mom and dad, who are amazing! if you want tips on keeping the O2 cannula on, write- our good friend has a cannula and NG tube.
jackie and joel and baby rafael <aeonflux4444@yahoo.com http://www.caringbridge.org/ny/rafael>
brooklyn, ny - Wednesday, January 19, 2005 11:26 PM CST
thanks for signing Heather Grace's guestbook! Your little Heather is so cute! I will check back often and your family will be in my daily thoughts and prayers.
Angela- www.caringbridge.com/ma/heathergrace <angembal@yahoo.com>
Natick, ma - Wednesday, January 19, 2005 4:05 PM CST
Hello,
Hi to the Coleman family! I am so glad to see you back on line. Give a hug to the kids!
Love,
Brenda
Brenda <btw3798@charter.net>
Easthampton, MA USA - Wednesday, January 19, 2005 6:55 AM CST
Glad to hear Heather's doing well right now. Sounds like you are really busy! Sending lots of hugs & prayers~
Caden's Connections Vicki & Caden Williams <vicki.williams@netxv.net>
San Angelo, TX - Thursday, January 13, 2005 8:38 AM CST
Dear Paul & Heidi,
'Great seeing y'all. However short or long, life and the role we play is precious. I once asked my Aunt Ethel, a retired nun who formerly taught in Lawrence, what she thinks about kids born prematurely, retarded, ill, and so forth: she said they are here to teach the rest of us, and I've found this to be true of such children and adults. I will keep praying that ways are found to enrich Heather's life as much as possible so she can enrich others. Keep your spirits up!
Chris Niestepski <cdninsc@dock.net>
Camarillo, CA - Friday, January 7, 2005 10:54 PM CST
I wish your trip could have been a little better. Sounds like a real adventure. Prayers coming your way.
God Bless
Elijah
Ann <akurtz1974@msn.com>
Brighton, Co USA - Friday, January 7, 2005 0:20 AM CST
What a cutie! I really enjoyed visiting your web page. I just love these sites as they are so informative and also to be able to see different members of the family can be a nice thing also.
Visit Asenath and Zipporrah at www.caringbridge.org/ia/mitomomof9
Darla Klein <honeybear50317@msn.com>
Des Moines, IA USA - Sunday, January 2, 2005 12:48 AM CST
Heidi,
I am praying for Heather, as she continues to battle health problems. Please know my heart goes out to your family.
Ann E <gardn02@yahoo.com>
Columbus, MS - Saturday, January 1, 2005 4:27 PM CST
Merry Christmas everyone! I hope you have a wonderful day, give Heather a big hug for me!
Heather <HVallatini@hotmail.com>
Braintree, Ma - Friday, December 24, 2004 6:46 PM CST
I was hoping to come and read an update that says she is doing so much better. Im sorry of her recent struggles. Im keeping her in my prayers.
She is such a cutie!
Wishing you a Merry Christmas and a Healthy New Year
All our love
Angela, Alyssa, and Baby Bear "Jacob" SMA Type 1 <angela.trick@gmail.com>
Peterborough, Ontario, Canada - Thursday, December 23, 2004 11:50 PM CST
Hi Heidi,
I am so sorry about your stay at Baystate and all the struggles that Heather is going through. It breaks my heart to hear that she has yet one more thing to battle.
I am hoping I will get to meet you next week when I am up in Massachusetts. Hugs to all of you.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Saturday, December 11, 2004 1:44 PM CST
Hi Heidi and Heather. Im sorry your having such a hard time right now. I KNOW how difficult it is when things are so rough and hard. My Jacob is hooked up to so many machines and has also lost almost everying. Has no movement now. But I focus on what I can do for him and love those smiles when we get them. Its hard watching them lose so much but also amazing when you get to see them do something for the first time again.
Just love her like you do. She sure is a special little girl ;) WOW she sure is getting big. I wish Jacob could gain some weight. Ill be praying her bowels start to function again and she doesnt get into too much discomfort with them. I know Jacobs comes and goes and he doesnt tolorate his gj-tube feeds well when they arent working. He is vented through his g-tube 24/7 also.
Sending warm thoughts and prayers
Give her a squeeze from me and Baby Bear 'Jacob'
Angela Trick <angela.trick@gmail.com>
Peterborough, Ontario, Canada - Sunday, November 28, 2004 4:05 PM CST
Hi there every one, its Heather's nurse Heather from the floating!! I found your webpage I'm so glad, now I can keep tabs on you!! Hope Heather is doing well at home and everyone else also. Keep on those nursing companies, I know they can be difficult. Take care :)
Heather <HVallatini@hotmail.com>
Braintree, Ma - Wednesday, November 24, 2004 10:33 AM CST
Hello: Stopped by to see if there were any updates from your doctors appointments this week. Hope things are going well.
hugs~ Kerry, Hailey & Brenna
Hailey & Brenna's Page <kerry.tobin@verizon.net>
Plymouth, MA - Saturday, November 20, 2004 7:03 AM CST
Glad you're still at home! Hope you get good news from the docs. Hop eyou all have a great Thanksgiving....AT HOME!!
Caden's Connections
Vicki & Caden Williams <vicki.williams@netxv.net>
San Angelo, TX - Thursday, November 18, 2004 10:07 AM CST
YAY!!! Go Heather! So glad to hear you guys are on your way home today. What a long 6 weeks it has been for your whole family. I wish I could come up there and help out so many of the mito families with nursing. It would be my dream job! If only I lived in Mass!! :)
Praying for Heather to keep doing better....
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Thursday, November 11, 2004 6:56 PM CST
Yea!!! We are so happy that you and heather get to come home! I will talk to you when you get settled. Here is Cassie's new website www2.caringbridge.org/ma/cassie
take care,
Brenda
Brenda <btw3798@charter.net>
Easthampton, MA USA - Thursday, November 11, 2004 8:07 AM CST
YEAH today is going home day!!! Have a safe drive and don't come back for a while this time!! Thanks for posting about Natalie I have been checking her site for an update we will be praying for her.
Kerry, Hailey & Brenna
Hailey & Brenna's Page <kerry.tobin@verizon.net>
Plymouth, MA - Thursday, November 11, 2004 6:00 AM CST
Glad heather is sitting up and SINGING!Praying her infections clear soon and her recovery is steady.
Anne - www.caringbridge.org/wi/zachsam <TPN@TPN.com>
- Friday, November 5, 2004 10:38 PM CST
Heidi:
I was great to meet you and Heather in person today after visiting her site so many times. She is a beautiful girl!! Hope you can be home soon. Please let me know if I can bring anything in for you during on of our appointments ~ we are back @ NEMC Friday morning.
Kerry, Hailey & Brenna
Hailey & Brenna's page <kerry.tobin@verizon.net>
Plymouth, MA - Wednesday, November 3, 2004 2:59 PM CST
Yeah -out of the ICU and the bleeding has stopped. Thanks for the great news Paul. So glad the other 2 kiddos has a good halloween - you are one awesome set of parents to those 3 blessed children!
Anne - www.caringbridge.org/wi/zachsam <TPN@TPN.com>
- Sunday, October 31, 2004 9:44 PM CST
Heidi and Heather,
I am thinking of you and our prayers are with you. We hope Heather has a speedy recovery.
Heidi and Lexi
Heidi <Lexicam24@cox.net http://www.caringbridge.org/fl/alexandria>
Johnston, RI USA - Sunday, October 31, 2004 5:27 AM CST
Hi Heidi, Paul and Heather,
You don't know me, but I am a good friend of Malisa's and she was telling me about your sweet little girl. I am sorry to read that she is again back in the hospital. I have been keeping up with your latest updates. Sorry that she is in so much pain. You are all in my thoughts and are on my prayer list. Stay safe, and Heather stay Strong!! Hugs,
Ann-Marie McDonald <peetie@ptd.net>
- Sunday, October 31, 2004 1:48 AM CST
I hope all is well.
Eli's Page
Ann <akurtz1974@msn.com>
Brighton, Co USA - Friday, October 29, 2004 1:07 AM CDT
so sorry for all you are going through...just wanted to let you know that i think of you and pray for heather everyday. she is such a strong little girl with a strong and wonderful family!!!
jackie and joel and baby rafael <aeonflux4444@yahoo.com>
ny - Friday, October 29, 2004 0:37 AM CDT
Hi Heidi,
Just wanted you to know that I am praying for a successful surgery for Heather tomorrow. I know she's in good hands there. She's a strong little girl!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, October 24, 2004 2:20 PM CDT
Are you guys home????? I sure hope so! I hope This week is going well. Hope the tests went well last week. Sending many thoughts and prayers your way.
Caden's Connections
Vicki Williams <vicki.williams@netxv.net>
San Angelo, TX - Wednesday, October 20, 2004 10:26 AM CDT
Just stopping in to say Hello!!!!
God Bless
Oh boy I finally found time to sign in. Sorry it has been so long. I haven’t been able to get around to everyone lately. Things have been a little crazy here. I have been trying to keep things normal while family is coming in and out. It might be a while before I can get back around as I am doing work on Eli’s Angels and hoping to finish the paperwork this week. Know that I pray for all our buddies every night. There are some many things that remind me of each one throughout the day. I love to think of such wonderful gifts. Elijah got a Pooh costume for Halloween. He also got to go to the pumpkin patch. I sure hope you are all planning a wonderful Holiday.
Elijah’s Journey
Eli's Page
Ann <akurtz1974@msn.com>
Brighton, Co USA - Tuesday, October 19, 2004 2:25 AM CDT
WELCOME HOME HEATHER and HEIDI!!!!!!!!!
Anne - TPN List <TPN@TPN.com>
- Saturday, October 16, 2004 8:39 AM CDT
Sad to hear about all the issues. I pray they can be lifted from her.
God Bless
Eli's Page
Ann <akurtz1974@msn.com>
Brighton, Co USA - Monday, October 11, 2004 1:02 AM CDT
Hi Heidi and Paul,
Thank you for keeping us updated. I am glad Heather is getting some things straightened out and hope she continues to improve a bit each day.
Anne <TPN@TPN.com>
- Sunday, October 10, 2004 8:54 PM CDT
Hi Heidi and Paul,
Just checking in on your cutie pie. I hope she's doing better this week. You guys have certainly had a rough time lately. I have been keeping you in my prayers.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Monday, October 4, 2004 11:17 PM CDT
Stopping in to say hello. I am praying for you.
Eli's Page
Ann <akurtz1974@msn.com>
Brighton, Co USa - Monday, October 4, 2004 9:12 PM CDT
Hello:
Just checking in to see if there were any updates on Heather. We were at Floating today for appointments and I was going to stop by and introduce myself, but we were running late. We will be there again Wed and Thurs of this week and a lot next week. Hope she is doing better and can be home soon.
Kerry ~ Hailey & Brenna's Page <Kerry.tobin@verizon.net>
Plymouth, MA - Monday, October 4, 2004 7:23 PM CDT
I am sending prayers for Heather and your family. I hope she heals soon. May God bless you all every day.
www.caringbridge.org/tx/cadenlane
Vicki Williams <vicki.williams@netxv.net>
San Angelo, TX USA - Thursday, September 30, 2004 3:03 PM CDT
So sorry to hear that Heather is in the hospital and not feeling well at all. Ill be back to check for an update soon! My prayers are with you all
Angela and Little bear
Angela Trick <angela.trick@gmail.com>
Peterborough, Ontario, Canada - Monday, September 27, 2004 11:30 PM CDT
I sure hope you will be able to get a van. My little Eli can't hold his head at all so I can relate. It would be really nice for you and Heather. The wheelchairs are so supportive.
Eli's Page
I am praying for your family. God Bless
Ann <akurtz1974@msn.com>
Brighton, Co USA - Sunday, September 19, 2004 6:38 PM CDT
Hi Heidi,
Sooo glad the change in TPN seems to be making a difference. It's amazing what a difference having a good team of doctors can really make. I am glad that they are all working together to help Heather feel better. AND...Yay for small miracles...so glad to hear the MRI was negative!!!
Let me know if you end up in Boston on Thursday or Friday since I will be at NEMC those days. I would love to meet you guys!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, September 19, 2004 2:58 PM CDT
oh she is SO CUTE!!! look out when rafael is old enough, he can be a real flirt. we hope she feels better soon.
jackie and joel and baby rafi <aeonflux4444@yahoo.com>
ny - Sunday, September 19, 2004 1:04 AM CDT
Heidi--
Wanted to check in and see if there was any more updating on Miss Heather.
Thinking of you--
Sheila (from TPNsupport) <SheDeKold@aol.com>
- Friday, September 17, 2004 2:13 PM CDT
Heidi,
You stopped by to visit Morgan's CB site so I wanted to stop by here too! Heather is an amazing little girl and so beautiful too! Will bookmark you guys and check in on you soon! Hope she feels better soon.
Dawn <thefourofus03@yahoo.com http://www.caringbridge.org/oh/morgan/>
- Saturday, September 4, 2004 4:32 PM CDT
Heidi, she is a doll. I know what you mean about not getting expensive equiptment covered. We have been having problems with major drugs now. Hang in there, and know we think of you often.
missy and jeremy <miswillis68@comcast.net>
- Wednesday, September 1, 2004 10:25 AM CDT
Heidi, Paul, Katie, Nick & Heather --- I love Heather's picture...the water dripping off her.. it's great!! She is such a happy baby.. amazing little whirlwind of joy!!! See you soon...
Candy <clynde94500@cs.com>
Easthampton, MA USA - Tuesday, August 31, 2004 6:55 PM CDT
Give Heather a big hug from me!!!
Holly Dybas <hsd38sps@comcast.net>
- Monday, August 30, 2004 5:22 PM CDT
Heidi: I am so glad heather is doing better. You guys certainly deserve a break. Sounds like life is budy but a wonderful kind of busy. Praying it lasts.
Anne - www.caringbridge.org/wi/zachsam
- Sunday, August 29, 2004 10:02 AM CDT
Hi Heidi,
Sounds like you're all having a great week! I'm glad Cody is having fun with you. Kisses to Heather. Go Baby!
Lin
Lin <Ygrainne@aol.com>
Easthampton, ma usa - Friday, August 27, 2004 0:17 AM CDT
Hi Heidi,
Just checking in. I hope Heather is starting to feel better. She is so adorable and I love to hear that she is doing typical toddler things! Hoping for more of those normal toddler days. Glad you were able to handle more at home this time. HOME is such a great word!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Wednesday, August 25, 2004 0:17 AM CDT
I just love the sprinkler picture!
You have a beautiful family--Praying for home. It has a whole new perspective to it.
Thinking of you!
Sheila (TPNsupporter!)
- Saturday, August 21, 2004 8:38 AM CDT
Hi Heidi,
Just had to take a peak at that cute little toddler. So glad things are in a good place these days.
Traci
traci kolb <tssktssk@hotmail.com or traci_kolb@yahoo.com>
West Seneca , NY USA - Saturday, August 14, 2004 9:13 AM CDT
Hope Baby Heather is doing better.
Love,
Auntie Heather & Uncle Mike
Auntie Heather & Uncle Mike
TN - Friday, August 13, 2004 9:16 AM CDT
Hey, everybody! This is Karl - Heather's uncle (and Paul's brother).
I had the pleasure of having dinner with them last night in Boston and Heather was a perfect angel. We had a great meal, great conversation, and Heather refused to fall asleep because she wanted to be part of the whole scene. She was happy the entire time!
(Uncle) Karl <kcoleman@law.harvard.edu>
Boston, MA USA - Tuesday, August 10, 2004 11:56 AM CDT
Thought I would check in on little Heather. Good to see she had a couple of good days.
I love the water photo. I can almost feel the splash.
Eli's Page
Ann <akurtz1974@msn.com>
Brighton, Co - Tuesday, August 10, 2004 2:10 AM CDT
I didn't know I could do all this on the web tv. Heather's picture is adorable as well as the family one.
Love Mom & Dad
Lillian & Richard Coleman
Mashpee, Ma USA - Sunday, August 8, 2004 3:18 PM CDT
Hi Heather and family, Your website is wonderful. I have been praying for you all for a long time now. It was so good to see Heather sitting in the sprinkler and read of her trimuphs and that she is able to play with her brother and sister. I am Matt's mom. Karl and Matt have kept me updated for sometime now. But I just found out about the website. I think of you often. God Bless and Keep You All and Make His Face to Shine Upon You and Give You Peace. Love Iris
Iris Stanfield <Istanf09@earthllink.net>
Beaumont, TX USA - Sunday, August 8, 2004 0:48 AM CDT
Hi Heather and family!
So glad to see that your UTI is gone! It looks like Jacob now has one :(
Hope your doing fine!
LOve just absolutely love the photo of you in the sprinkler. Looks like lots of fun!
Angela and Baby Jacob
Angela Trick <angela.trick@gmail.com>
Peterborough, Ontario, Canada - Friday, August 6, 2004 6:00 PM CDT
Heather is so cute. I found you when you signed Eli's site. I found him through somebody else. I started out with Benji because he is in my daughter's support group for Dysautonomia children.I hope this finds her doing ok.
Vicki Davis <davistribe3@wmconnect.com>
Louisville, Ky USA - Thursday, August 5, 2004 10:20 PM CDT
I hope the Oxygen continues to help heather. How nice that your family was able to get out to dinner together. Such simple things but so meaningful for everyone!
Anne - www.caringbridge.org/wi/zachsam <juhlmann@execpc.com>
- Tuesday, August 3, 2004 8:16 PM CDT
The webpage is GREAT and a nice way to update us all on Heather's day. I check in often now. Hope you had a good day at that recent playdate.
Dawn Smith <Dawnand3dogs@aol.com>
- Tuesday, August 3, 2004 5:46 PM CDT
Hello there Little Heather
It’s me Ann.
I know it has been a while. We went on a little weekend trip, you will have to come by Eli's Site to see the photos. I came by check on you all since it has been so long. I love the little story about the birds and Elmo. It is wonderful to hear those uplifting things. She is such an angel. Whenever I stop by and see that cute photo on the front page I just smile.
Elijah Bear’s Page
Ann <akurtz1974@msn.com>
Brighton, Co - Wednesday, July 28, 2004 2:00 AM CDT
SOOOO happy to read Heather had a good weekend & even got outside for a bit. I hope switching the abx helps & she continues to have good days. I'm way behind in e-mails & signing guestbooks, but have been reading & keeping up. Please know that I think of ALL of you often & keep you in my prayers always!! I'll call you soon.
Hugs,
Hope <hope2222@hotmail.com>
- Tuesday, July 27, 2004 7:41 PM CDT
Hello nice to meet you. I came here from Elis Page. He is a good friend of ours. Heather is adorable and sure is quite a fighter! I hope this UTI goes as quickly as it came and those darn seizures and fevers stay away.
I will be back to visit.
My son Jacob has Spinal Muscular Atrophy Type 1. Your welcome to come and visit anytime.
Prayers and hugs
Angela, Alyssa and Baby Jacob
Angela Trick <angela.trick@gmail.com>
Peterborough, Ontario, Canada - Sunday, July 25, 2004 9:57 PM CDT
Heather is absolutely adorable! I really enjoyed seeing her as well as your whole family.
Darla Klein <honeybear50317@msn.com>
Des Moines, IA USA - Friday, July 23, 2004 12:42 AM CDT
Hello,
I will add you to my prayers. I found this page through another caring bridge site. My son Elijah is 17months old and has a mitochondrial disease called Leigh's. It is very nice to meet you. Please stop by his site sometime. We love visitors.
Eli's Page
Elijah loves Elmo too.
Ann <akurtz1974@msn.com>
Brighton, Co USA - Thursday, July 22, 2004 6:34 PM CDT
What a DAY you and Heather had! I love the "Home Movie Elmo" cues that Heather was giving you. I think I would rather be home watching Elmo too rather than going to the hospital! Smart little girl!! I hope that her temp goes back down and she feels good for the weekend.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Thursday, July 22, 2004 0:19 AM CDT
What a dear little girl! Your family is an inspiration and example of love. May God continue to bless you with strength, grace and hope. Thank you for sharing with us.
Carl Anderson
Florence, MA USA - Monday, July 19, 2004 9:03 AM CDT
Heidi, Heather is PRECIOUS! She looks like a wonderfully happy little girl..good job Momma! You have a beautiful family, thanks for sharing!
LeeAnne,Mom of Lauren, Mandy, Matt and Sammi four special, cool, rare, challenging kids and wife to Allen a wonderful husband and fantastic dad ..lol
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Saturday, July 17, 2004 10:19 AM CDT
Heather looks like a doll, it is so wonderful to put a face to a name!
Patty Woods
- Saturday, July 17, 2004 2:03 AM CDT
How cute is SHE!?!?! :) You are added to MY FAVORITES so I can check on Heather every so often. Its such a special way to keep in touch. Thanks for stopping by Angel's site, too! And as for pregnant/TPN/camping... Its about a LOT OF HELP! LOL. I'm only 4 1/2 months along so its pretty easy on the preggo front and Daddy's an RN so that helps a lot with TPN. The rest is just plain old ANGEL! Can't wait to learn and see more from this site!
Sarah (Angel's mom: www.caringbridge.org/ca/angelbaby) <sarahjean05@yahoo.com>
Redlands, CA - Friday, July 16, 2004 11:48 PM CDT
Hi Heidi,
I love the site, it is very nice. Heather is a real sweetie and your other two kids are cuties too. They look like patient and kind children. Thinking of you.
Traci Kolb <tssktssk@hotmail.com or traci_kolb@yahoo.com>
West Seneca, NY USA - Friday, July 16, 2004 8:49 PM CDT
Hi Heidi,
What great pictures, I love the one with the whole family! Keep up with the great writing. Hugs to everyone!
Love and God bless,
Brenda
Brenda <btw3798@charter.net>
Easthampton, MA USA - Friday, July 16, 2004 6:17 PM CDT
All my love to my babies.
Holly <hsd38sps@comcast.net>
- Friday, July 16, 2004 5:38 PM CDT
Oh Heidi! What a beautiful family-and that twinkle in HEATHER's EYES! Praise GOD!
Bless you!
Sheila <SheDeKold@aol.com>
Floyds Knobs, IN U*S*A! - Friday, July 16, 2004 4:58 PM CDT
WHAT A CUTIE! I can't wait to see more pictures of her and some pictures of the rest of your family too. I will look forward to hearing updates about Heather. She is in my thoughts so much.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
Doylestown, PA - Friday, July 16, 2004 2:56 PM CDT
i came and visited anyway even though you do not have the site finished. i love her pictures and so glad to put a face to a name now!
thanks for sharing.
Anne - TPN List
- Tuesday, July 13, 2004 9:21 PM CDT
What a beautiful little girl, Heidi!! I'm glad you're joining the CB club!! It'll be great to follow Heather's journey a little more closely. I hope all is still going well. Thinking of you guys & praying, as always.
Hugs,
Hope (www.caringbridge.org/ma/natalie) <hope2222@hotmail.com>
Lowell, MA USA - Tuesday, July 13, 2004 8:52 PM CDT
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