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i have hurlers disfladsfease and i lived!
danieal. <matdog91@hotmail.com>
- Friday, April 25, 2008 12:17 AM CDT
Happy St. Patrick's Day
Love,
Kim and Scotty MPS II
www.caringbridge.org/ca/friends
Kim <cottons@earthlink.net>
Modesto, CA - Friday, March 17, 2006 4:09 PM CST
Sorry we have been gone, but we are back now .
We want to keep in touch with all our Hurler friends.
I will update the photo gallery by the end of the week!!
Jackie Koch,Kaitlins Mom
worth , IL USA - Wednesday, February 22, 2006 11:49 PM CST
Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, January 1, 2006 11:43 PM CST
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, August 13, 2005 2:30 PM CDT
happy easter
love kathy and katilynn
www.caringbridge.org/ky/katilynnsmom
KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
tomahawk, KY USA - Friday, March 25, 2005 9:56 AM CST
Wishing you a Merry Christmas and Happy New Year!!!!
Love and Hugs,
Tami Slawson ( www.caringbridge.com/ca/slawson
tami <tlslawson@aol.com>
- Friday, December 24, 2004 9:47 AM CST
Hello Katlin,
I would like to say that you are a beautiful little girl, and I thank you so much for your web page. I have a granddaughter that has just turned 5 months old and has been diagonised with Hurlers MPS1. She has been recieving Enzyme replacement treatments for the past 3 months and we have just recieved our date to go to sick childrens in Toronto on September 27th for her Bone Marrow transplant. It is such a great help too be able to read stories such as yours. Our love and prayers go out to you and your families, and I hope that we will have great news when this is all said and done.
Karen Smith <lloyd.karen@ns.sympatico.ca>
Parrsboro, NS Canada - Sunday, September 19, 2004 7:49 AM CDT
Just dropping by to let you know that I linked your site to mine at MPS Forum.com on the “Links” page. I hope this was okay and thank you for sharing your site with other MPS/ML parents!
I enjoyed your site!
Jessica
(Mom to Kaity~Hurler Syndrome age 13)
Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, July 30, 2004 6:57 PM CDT
Thank you so much for checking in on us. I had a really rough day (just normal worn out mom stuff) and reading your entry really cheered me up and I hope to get back on the right track tomorrow. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, June 17, 2004 7:08 PM CDT
HI, Miss Kaitlyn!
So glad to hear you're doing so well! Have a ball with Mickey Mouse on your Make A Wish trip! We'll catch up in June at the MPS luncheon in Chicago. Can't wait to see you again! Love,
Jenny Birmingham <jennybirm@comcast.net>
Arlington Heights, IL USA - Monday, May 31, 2004 10:20 PM CDT
Hello Kaitlyn and family. Just wanted to stop by and check in you all. My daughter, Laney, was transplanted at Duke in Oct. 2002 for Hurler and I came accross your site from another little Hurler friend. I'll sure be checking back in often. Take Care and sending lots of kisses your way from Laney!!
Love,
Beth Anne Biggs
caringbridge.org/tn/laney
Beth Anne Biggs <bigg6550@bellsouth.net >
Rogersville, TN - Friday, January 23, 2004 10:51 PM CST
Hi Kaitlyn!
Just checking in on you and keeping you in my thoughts and prayers!
Lisa Post <ltjpost@cox.net>
- Friday, January 23, 2004 7:44 PM CST
Kaitlin looks so pretty in her halloween pictures!!! I look forward to seeing more pictures and reading more updates in the future!!!!
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
- Thursday, January 15, 2004 9:28 AM CST
It's great that you have a website now. I would like to thank you for meeting us at Childrens Memorial Hospital. It was great to see you all and it meant alot to us. I know that its going to be a long road but by seeing Kaitlin in action it gave me hope. Hope that I thought I lost. Thanks again and give Kaitlin a hug from us.. Love Denna, Brian and NIKI
Denna Panozzo(Nikoles Mom) <Draee67@aol.com>
St. Anne, IL - Friday, January 2, 2004 10:35 PM CST
Dear Kaitlin,
I am so glad that you have a web page now and will be able to join our big web family. My son Andrew had a BMT a little over 2 years ago. He is 4 now and quite a handful but we are working on that! Hee, hee. I hope your 2004 will be a banner year filled with lots of great things. Check in on us at www.caringbridge.org/page/andrewh
Anne Himes <arhimes@msn.com>
Boonsboro, md USA - Friday, January 2, 2004 10:27 AM CST
Hi, my name is Trisha Athy and my son Aaron is almost 1 year post transplant for Hurlers Syndrome. He had his transplant when he was 15 months old. He is now a sneaky two year old and doing great!!!! I got your webpage from Molly's and just wanted to pop in and say hello!!! You can visit Aaron's page at caringbridge.org/il/aaronathy
Trisha Athy <aaronsmom1027@sbcglobal.net>
Belleville, IL USA - Thursday, January 1, 2004 6:19 PM CST
My name is Jennifer Restemayer, and my daughter Allison will be three on Febuary 5th! She started Aldurazyme in May! I love the picture on the page, and hope to learn more about you!
Love, Jennifer Restemayer
Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net >
Bismarck, ND Usa - Sunday, December 28, 2003 5:44 PM CST
Merry Christmas (belated) to you and your family Kaitlyn!!! We are praying for you that the New Year blesses you with health, love and great joy!!! You are a beautiful little girl!!!
The Ahern Family <carynahern@msn.com>
Libertyville, IL - Saturday, December 27, 2003 11:03 AM CST
Hi Kaitlyn! Molly and her mommy told me about you and your new web page. You sure are a cute little girl! I'm so glad that you had a successful transplant and I'll be keeping you in my prayers to continue to do well! I have a real fondness for Hurler kiddos just like you!
Lisa Post <ltjpost@cox.net>
South Windsor, CT - Friday, December 26, 2003 8:03 PM CST
Hey, Kaitlyn-
You are just TOO cute! We're so glad you are doing so well. We love you! Keep up the good progress.
Love,
Molly Birmingham and Family
Jenny Birmingham <jennybirm@comcast.net>
Arlington Heights, IL USA - Monday, December 15, 2003 5:36 PM CST
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