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Click here to go back to the main page. Wednesday, November 24, 2004 5:46 PM CST hi, i just wanted to let you know that i'm doing well.
Thursday, August 5, 2004 9:22 AM CDT Hi, everything's been going good since my last update. My last appointment went well and I have another one on the ninth, I think.
Saturday, June 19, 2004 3:50 PM CDT Hi, school got out on June 4th so I've been out of school for a while my baseball team's doing okay. We've won 6, lost 8 and tied 1. Yesterday's game was the last of the regular season. Our first tournament game is Tuesday. We play the team we've beat once and lost to twice. If we win we go to the championship game. If we lose we play again for third place. I usually play cather, pitcher, 1st base, and sometimes shortstop. And I was also picked for the 10 year old's all-star team. Wednesday, May 12, 2004 7:58 PM CDT Hi,
Tuesday, April 27, 2004 7:54 PM CDT Hi, I had my bone marrow biopsy yesterday and good news! It's clear! So that's good to get that out of the way. I'm on Prevacid every night now because my stomach's not feeling that good. I stayed home from school last week. Thursday, April 15, 2004 2:56 PM CDT Hi, today is one-year post-transplant. Everything's going good. It turns out that April 26, the day of my bone marrow biopsy, is the day of my first baseball game. So, basically what I'm saying is if I'm allowed to play, I'll be playing with a sore butt. Friday, April 2, 2004 5:21 PM CST Hi, I had my appointment on Monday. The doc said everthing looks good. I'm going to have my next bone marrow biopsy on April 26.
Sunday, March 14, 2004 10:43 AM CST Hi, Sorry I haven't updated in a while. There hasn't really been anything going on. School's fine and everything. The Illini have been keeping me entertained. I had baseball tryouts yesterday. I think baseball starts in a month or so. That's all there is to say.
Tuesday, March 2, 2004 5:10 PM CST Hi, I had my appointment yesterday. Everything looks pretty good, the doctor said.
Monday, February 23, 2004 3:06 PM CST Hi everybody
Friday, February 13, 2004 2:55 PM CST Hi, yesterday we to a trip to St. Louis and saw the Blues play hockey. We watched the game in a suite and, best of all, free food! There were lots of chairs and it was really nice. But, unfortunatly, the Blues lost 4-0. Sunday, February 8, 2004 6:35 PM CST Hi, I had an ultrasound of my liver on Friday and so far everything's turned out good. I missed school on Friday because we had to wait so long at the doctor's. Wednesday, February 4, 2004 5:30 PM CST Hi, I had my appointment 2 days ago but I haven't gotten around to updating until now. My mom'll tell you what's going on...Hi it's Stacey. Alex's liver enzymes are higher than they should be. They were high last month too. Last month the doctor said that these enzymes fluctuate and he wasn't concerned. This month he said that since they are higher than last month this is a trend that we need to look into. So, the doctor ordered some additional bloodwork (that Alex did later on Monday afternoon) and he ordered a liver sonogram for this Friday. Alex will see Dr. Musselman after the sonogram. There are a variety of things that could be causing the liver enzymes to be elevated. An infection, hepatitis, maybe even graft versus host disease. The other "chemistries" show that his liver function is fine and his other counts are fine. Michael talked to the doctor in more detail today and we feel better after talking to him. Some results from the later blood draw on Monday are back and they look good (these were tests for some other disorders that he ordered after consulting with a pediatrician with a subspecialty in gastrointestinal disorders). Hi, it's Alex now and there you have it. I'll update when we know more. Wednesday, January 28, 2004 6:04 PM CST Hi, today I'm 10. People have been asking me how it feels and I don't feel any different. Today we got out early from school, (a good birthday present) but we also got report cards (not that good). Not that I get bad grades, but it makes you a nervous wreck. Well, that's about all I have to say, except that I'm going to have my monthly appointment in a few days so I'll update then. Sunday, January 25, 2004 9:46 PM CST Hi, today I had a birthday party with all of my friends at Skateland. We spent tons of money on games and we had a great time. My actual birthday is on the 28th. We also got a whole heap of snow today so it was a pretty good day. Monday, January 19, 2004 10:42 AM CST Hi, My cough is hanging around but it's not too bad. We had a basketball game on Saturday. We won 39-20. I scored 12 points. Our tean is called the orangemen and we're 2-0. Wednesday, January 14, 2004 5:19 PM CST Hi, My cough is back. I stayed home from school yesterday because I had a 102 fever Monday night. Matthew has been sick with a cough and a runny nose for about a week. Erin stayed home from school today because she didn't feel well. So, we're all pretty sick but I went to school today. The Make-a-wish people are here now so I gotta go. Wednesday, January 7, 2004 5:13 PM CST Hi, I had my appointment yesterday. My counts were pretty good with my ANC at 2,800. The week's been okay but uneventful. School started on Monday. I have a basketball game on Saturday. We haven't had practice for almost a month now because of the holidays. Friday, January 2, 2004 2:39 PM CST Happy New Year!
Tuesday, December 30, 2003 1:02 PM CST Hi, Sorry I haven't updated in so long. We've been really busy with the holidays. Merry Christmas, and happy New Year to all of you. 2003 is almost over. Friday, December 19, 2003 5:25 PM CST Hi, I have some news...Last night I went to the doctors for a cough. We waited there a long time. I had a blood draw and chest x-ray because I've had my cough for so long. It all looked good but I had a temperature of 100.3. The doctor even suggested admission but, thankfully, we didn't go to that option. The doctor did keep me out of school today though, just because of my temperature.
Sunday, December 14, 2003 7:23 PM CST Hi, the week went all right. Today's schedule was packed, though. This morning we went to church, and after church we had brunch with my grandma because it's her birthday. At 1:00 there was a Pediatric/Oncology holiday party. I saw some of my doctors and nurses. A guy interviewed me for the News Gazzete. After the party there was a basketball program. You could get autographs and win prizes. I won an Illini basketball and a T-shirt. It was a fun program. Sunday, December 7, 2003 6:55 PM CST Hi, Yesterday was awesome. I went to Chicago to see Illinois play in the United Center with my grandma and grandpa. The other team got KRUSHED, if you know what I mean, and the United Center was really neat. There were all kinds of exhibits and pictures in the hallways. Wednesday, December 3, 2003 9:01 PM CST Hi, We got back from our trip on Sunday. I haven't had time to update yet, but boy, do I have a lot for ya!
Monday, November 24, 2003 6:01 PM CST Hi, I left school early today for an eye appointment. They had to dilate my eyes and they're still a little blurry. Sunday, November 23, 2003 3:23 PM CST Hi, I'm STILL coughing. I hope it gets better during the next few days.
Wednesday, November 19, 2003 3:05 PM CST Hi, My cough hasn't gone away yet. The bumps on my tounge have, though. Over the weekent they got really huge and were painful. But now they're gone. Friday, November 14, 2003 4:39 PM CST Hi, I had an appointment for my cough yesterday. The doctor said I looked fine so that's good. We also got flu shots yesterday. It didn't hurt nearly as much as a blood draw but today my arm was sore. My cough is still in effect and I have these little bumps on my tounge that I get from eating too much sugar. I'll give you a hint why I have them: I bet it has something to do with October 31.
Tuesday, November 11, 2003 1:58 PM CST Happy Veterans Day! We send our best wishes and prayers who are fighting in Iraq. Monday, November 3, 2003 4:19 PM CST Hi, my appointment was okay. My counts were good, with my ANC around 2,600. Blood draws make me lightheaded and woozy. They hurt! The doctor said I don't have to take bactrim ever again. (Yea!) I'll have to go ro the Cancer Center only once a month now.
Sunday, November 2, 2003 6:59 PM CST Hi, Halloween was pretty good. We got loads of candy. We only get to eat to eat two pieces of candy a day. Matthew decided to wear his policeman costume. Friday, October 31, 2003 5:06 PM CST Happy Halloween! I had some post transplant tests yesterday. There was an EKG and breathing test. I left school early to do the EKG. There aren't any results yet.
Wednesday, October 29, 2003 5:51 PM CST Hi, sorry I haven't updated in over a week. School has been pretty good. The work isn't that hard and homework isn't piled up to my shoulders, so from my point of view that's pretty good.
Tuesday, October 21, 2003 3:23 PM CDT Hi, the first day of school went well. It was a long morning because lunch isn't until 12:30. The afternoon went quick, though. I saw my teachers from the previous years after school. I just wanted to say that. Monday, October 20, 2003 9:36 PM CDT Hi, the appointment in St. Louis went well. Last night I swam at the hotel pool. I have lots of news, though. I had my blood drawn in the hospital lab (which in my families' opinion is pretty crappy but that's a long story) and my ANC is around 2,000. Sunday, October 19, 2003 11:37 AM CDT Hi, just a quick update. The doctors gave me a new medicine on friday night and it worked! The hives haven't come back since. Friday, October 17, 2003 3:03 PM CDT Hi, the hives are back. They came back on Wednesday, they were pretty bad yesterday, and this morning I was covered with them. They are starting to come back right now and have taken over my arms and hands. So we're hoping this will be the last day of them (FOR GOOD!) because this is the third day of them and last time the lasted three days. Wednesday, October 15, 2003 8:45 PM CDT Hi, we got news that I'll be able to go back to school on Tuesday. I'm excited but a little nervous. I'm going to go to St. Louis on Sunday night for an appointment on Monday. We're going to stay at a hotel with a pool. In fact, it's the same hotel with the pool I fell in a couple months ago! Thursday, October 9, 2003 10:07 PM CDT Hi, well, I've got some news...BONE MARROW CLEAR! That's right, the test showed clear! My IV didn't hurt as much because of the numbing cream. My butt's still a little sore, but I expected that. The hives haven't come all day. There were a few yesterday but just a few! So I've passed the blood draw appointment and not another one for two weeks, hives are gone, and I don't have to have another bone marrow biopsy for about 3 months! Wednesday, October 8, 2003 8:17 PM CDT Hi, well earlier today they rescheduled my biopsy for tomorrow. I'm not that pleased about it being so sudden, but It's better to get it overwith. I'd say okay to get it done sooner if I had my line in, because without it I'll have to get an IV and the thought of a big needle going into your arm or hand is not that pleasant. I just wanted to tell you that. Tuesday, October 7, 2003 7:57 PM CDT Hi, the appointment was okay. They scheduled my bone marrow biopsy for friday the 10th. They are going to give me some cream on my hand or arm to numb it up before they put an IV in. They'll give me a drug that I've never had before, because with the other ones I could still feel the needle. They're going to send me to the deepest part of la la land, so I won't feel anything. Monday, October 6, 2003 6:27 PM CDT Hi-Today's Erin's birthday--she's 7. Everyone's here; both sides of grandparents. I woke up yesterday and there were hives on all ten of my fingers so they were hard to move. Except the pinky that had been swollen the day before. We think the hives are caused by the time of year; mostly corn harvesting with all the dust up in the air. Saturday, October 4, 2003 8:05 PM CDT Hi, today was a weird day. This morning I woke up itchy and it turned out I had hives. The more I scratched, the bigger they got. My mom called the hospital but we weren't too worried because last year at the exact same time the same thing happened to me. I had to take Benadryl, and I also took a bath. Then it all went away! But, in case you don't know, Benadryl makes you sleepy. So I took a long nap from about 11:00a.m. until 1:45p.m. So I went to my grandpa's to watch Illinois and the Cubbies get killed, and then the hives came back! They were all over my face this time too. There was one on my pinky so it was twice the size of the other one. I took a shower and another Benadryl, but it didn't make me sleepy this time. There are a few remains of the hives still, but they've pretty much gone away. My pinky is still a little big, though. Monday, September 29, 2003 6:47 PM CDT Hi, I haven't updated in a while but I'm doing all right. I went to an Illini game on Saturday. Illinois stinks this year. they have 1 win and 4 losses. But the Bears are playing the Packers tonight and I have faith in them.
Monday, September 22, 2003 6:31 PM CDT Hi, my appointment was great. The Illini football players came to the cancer center. The ones who came were, Matt Minnes, Carey Davis, Jon Beutjer, and Winston Taylor. I even got on the news! I played playstation 2 with Minnes and Davis. That was really fun. Since I didn't have paper I asked Carey Davis to sign my mask. Beutjer and Taylor signed one of my footballs. Sunday, September 21, 2003 4:59 PM CDT Hi, I went to an Illini football game yesterday and Illinois lost 24-17. It was an exciting game, though. My appointment is tomorrow instead of Tuesday. I have to use a needle because no more tubes. Tuesday, September 16, 2003 9:02 AM CDT Hi, I didn't update yesterday because it was a busy day. My tubes are out! O-U-T, OUT! They are going to take the stitches out on next Tuesday. A few times I've reached for my tubes to play with them and they're not there! I'll update again soon
Sunday, September 14, 2003 10:30 AM CDT Hi, I think the walk was good. You didn't really walk much. For the first hour and forty-five minutes all you really did was stand around talking. I talked on the microphone and that was fun. It was really cool once all of balloons lit up. They only lit for a second so everyone's balloons were flashing on and off. It was neat. I get my line out tomorrow and I'll update about how it feels to be "free".
Saturday, September 13, 2003 11:16 AM CDT Well, tonight is light the night. I'm really excited about it. It's still not too late to participate or contribute. Let me know if you want to. I'll be speaking at LtN so I hope you can see that. I'll update after the walk.
Friday, September 12, 2003 12:19 AM CDT Hi, today is my mom's birthday. She's 38. Light the night is tomorrow at meadowbrook park from 5:00pm to 9:00pm. It's not too late to participate or contribute. Let me know if you want to.
Thursday, September 11, 2003 12:29 AM CDT Today we remember the people who died two years ago senselessly in the 9/11 terroist attacks.
Tuesday, September 9, 2003 10:48 AM CDT Hi, Don't forget Light the Night is on Saturday so it's not too late to register! Contact me to find out how. I had my appointment this morning. My hemoglobin is 11.0. White blood cell count 2.05. ANC 980. I started homebound yesterday. I'll update soon,
Sunday, September 7, 2003 5:51 PM CDT Hi, A few days ago I got my hair trimmed for the first time since diagnosis. I also met my teacher for this year. I'm in a mixed 4/5 grade class. I got a buncha work from her. I went to a birthday party today. I went to a Illini footbal game on Saturday. Illinois throttled ILL ST. On Friday I had a scratchy throat and a 99.4 temp. Mom took me in to the ER and the doctor did a throat culture and blood draw. The throat culture was negative. I an ANC at about 3,000. Sunday, August 31, 2003 1:01 PM CDT Hi, got back from St. Louis last night. Illinois lost. 22-15. It was a good game though. I really want to thank all of the people who have visited my site. I put some links at the bottom of my page so you can check out other sites. Friday, August 29, 2003 2:13 PM CDT Hi, things are going fine. Tonight I'm going to St. Louis. (But not for an appointment). I'm going there to see Illinois play Mizzou in the first regular season football game for the tigers and Illini. They are having the game in Edward Jones Dome in St. Louis. (Where the Rams play) Some one who was on nine west the same time as I was is going to be there. (Mizzou fans) The game is tomorrow at 11 am. And also, I'm one of the teams' captains for light the night here on September 13th. So if you want to light the night on my team email me at alexroux1994@yahoo.com. Thanks, Alex
Wednesday, August 27, 2003 10:49 AM CDT Hi, my surgery to have my line taken out was rescheduled to Sept. 15th. It was my sister's first day of school today. She's in 1st grade. I have to wait till late October to go back. It is my brothers birthday today. He's 3. Tuesday, August 26, 2003 6:18 PM CDT Hi, I had my appointment today. My counts were OK with Hemoglobin:10.7 White Blood cell count:2.06 (Low)(But that's not bad) Platelet: 175,00 and ANC 1,300. I just now found out that I might have my line taken out next friday on September 5th. Wednesday, August 20, 2003 4:33 PM CDT Hello,
Tuesday, August 12, 2003 1:20 PM CDT Hi, I got back from my appointment earlier. I wanted to give my counts. Neutrophil:48.6 Monocyte:16.8 ANC:1,070. I might get to take my central line taken out in two weeks.
Monday, August 11, 2003 6:59 PM CDT Hi, I went to a St. Louis Cardinals game on Friday. The Braves won 7-2. There were four homers hit by Atlanta and four in the game. I had box seats. Someone from the hospital gave us the tickets. I was cheering for the Braves because I want the Cubs to win the division. I bought a Braves hat. The next day I went to a Chicago Bears preseason game here in Champaign. The Bears won 20-18. I left during the 4th quarter which was the most exciting one. I'm feeling good. My cousins from NC left on Saturday. I was on the channel 15 News because I was at the football practice. My cousin was on the front page of the News Gazette at the stadium when all of the players were giving autographs. I was at the Cardinal game then. I have an appointment tomorrow. I'll give you the results of that when I get them. Monday, August 4, 2003 6:32 PM CDT Hi, we're gonna have a busy next two weeks. My cousins from NC came today. I'm going to a Cardinals game on Friday. (My first major league game!) The day after I'll go to a Bears preseason here in Champaign. Then my OTHER cousins our coming from California. I should be putting some more pictures up soon. Friday, August 1, 2003 10:01 AM CDT This morning my mom's freinds and her kids from Atlanta came to our house. I rode my bike a lot without having breakfast and not feeling nauseous. That's a good sign. I'll update soon. Thursday, July 31, 2003 4:08 PM CDT Hi, I just wanted to let you guys know that I'm doing well and that soon I will be putting pictures in my photo album. So check that out if you have the chance! Wednesday, July 30, 2003 9:12 PM CDT This page has just been created. Please check back for additional updates.
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