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Tuesday, December 25, 2007 10:34 AM CST

Merry, Merry, Merry Christmas!!
We hope Santa made it to all the homes across the world. He certainly made it here yet no one is up yet but Camie and myself. She is so much a replicate of me when I was 13. It is predicted that Seattle will get snow today. That would fun to see snow falling on Christmas.
Yesterday was a lovely Christmas Eve. Marin started her day with a visit to the ear doc. We found this wonderful ENT who is finally, after years, being able to seemingly clear up Marin's ears, or at least improve them. We haven't mentioned the ear thing too much because there is so many other things going on but Marin suffers from cronic swimmer's ear. Dr. Lee sucked all kinds of "gunk" from her ear and has her on three different kinds of drops as well as an oral pill. Marin's hearing is restoring at almost 100%. Up until this point, we had thought that some of the hearing loss was due to radiation, which is a common side effect. Dr. Lee's father had a "very bad" brain tumor with two of the three types of cancer 15 years ago, and he is still alive today. It's wonderful to hear stories like this giving us our forever undying hope.
From the ear doc's office Marin went to the Bellevue Club to swim. She is looking really good in the water and, as always, loves it. During all of her practices, she takes breaks and "plays" in the water pretending she is a dolphin, etc. You know someone really loves something when they do it everyday, for hours, and still looks at it as fun and play!
We went to Christmas Eve service at 5:00p.m. and it was wonderful. Lots of Christmas carols were sang, and just the whole message of the season was felt. Our Preacher, Gary Gonzoles, told a wonderful story that I would like to share.
"A young boy was in Sunday school class making a little manger for their craft. As the teacher was going around checking everyone's manger, "Tommy" had two babies in his manger. The teacher asked him if he knew the story of Jesus. Tommy said, "of course!" He started to tell the story of Jesus and told it perfectly until the part when everyone started to come and see Jesus. Tommy then said, "when he first say Jesus he felt lonely, cold, and had nothing to bring Jesus. Jesus told him that he could crawl into the manger with him and they could keep eachother warm and that Jesus would help him to never be lonely. Tommy crawled into the manger and has been lying right by Jesus ever since." That's the way we should all feel on this day.
We just took a little break because everyone was up. We have opened all our gifts and everyone is thrilled. We are now having a wonderful breakfast and getting ready to go to So. Cal to visit my (Nancy's) side of the family. More festivities await us this evening.
Here's hoping all you find peace, love, and joy today, and from this day forward. As I must remember, we should never feel alone or afraid. Life is a precious gift and we should cherish everyday.
Merry, Merry, Merry, Merry Christmas!! And of course, anyone who doesn't celebrate christmas, may the belief you have bring you much joy today!!

A big Hug, the morrisons
Marin and gang
(Nancy, Matt, Camie, and Spydey)

As we move forward toward 2008, here is a quote for all of us: "The potential of the average person is like a huge ocean unsailed, a new continent unexplored, a world of possibilities waiting to be released and channeled toward some great good."




Saturday, December 22, 2007 12:52 AM CST


Marin underwent an MRI yesterday and we looked over the images with Dr. Geyer. There was an area of concern, but we're hoping this is a residual result of the gamma knife radiation. We won't have a consensus opinion on this latest MRI until the middle of next week (after Christmas) when the tumor board meets ro review her case. Again, we're hopeful that what looks like a 'hot' spot is radiated tissue, but we're cautious. It's always very alarming when we're seeing differences that are un explainable.

Thank you to all who've sent well-wishes and prayers. Have a safe and happy holiday weekend.

Love,
Marin & Nancy, Matt, Camlyn & Michael


Friday, December 21, 2007 2:02 AM CST


We're heading in to the holiday weekend asking to add a little extra prayer for Marin today. This morning she's undergoing an MRI to assess the status of her tumor. It's a regularly scheduled exam, so this is nothing of an emergency nature, but we're always a little on edge during this process. Marin has been feeling well and working out in the pool as well as doing her therapy, so we have faith that things are progressing in a positive direction.

It's been a nice week as Marin has been able to reconnect with some friends who are home from college in the last several days. She's enjoyed some time with Molly and with Ashley, and this type of intreaction with friends really gives her a lift. Her swimming is going well as we begin to plan a strategy to prepare her for the Paralympic trials coming the first week of April. We have several people who want to help and we'll be doing our best to help her get prepared. Thanks to all who are backing her with positive thoughts and prayers. We'll let you know how the MRI goes later today.

Merry Christmas,

Marin & Nancy, Matt, Camie & Michael


Friday, December 7, 2007 8:57 PM CST


Friday was a really good day for Marin at the U.S. Paralympics Open Championships. Once again, she only swam in one event, the 50m-freestyle, but today she shaved time off her personal best in both sessions. In the morning, she clocked in at 49.5 seconds for the free, which she swims on her back. In the finals this evening, she lowered that time to 48.0, which is a great mark for several reasons. First, it's a good time and it made Marin feel really good to have two fine races. Second, it shows she can go under :49 for the 50m-backstroke, which she was unable to do on Thursday. This really boosts her confidence. If she can make that mark in the 50-back, she qualifies for the U.S. elite team.

Marin was helped by some good advice from our old friend and one of her favorite coaches of all time, Chris Oliver who she swam with for the Bolles Sharks in Jacksonville. Chris is working with one of the elite athletes from Gainesville and we're becoming friends with Miranda Uhl who's having quite a meet herself.

This evening we drove down to the heart of Washington, D.C. to see the National Christmas tree and the White House. We strolled in front of 1600 Pennsylvania Ave., hung out with some national security cops, took some pictures and then drove back. We're all pooped out and going to bed anticipating another big day with Marin swimming the 100m freestyle.

Thanks for checking in!

Marin & Nancy, Matt, Camlyn, & Michael


Thursday, December 6, 2007 8:45 PM CST


Thursday was a fun and exciting day at the U.S. Paralympics Open Championships for Marin and several of her swim friends. Marin swam in one event, the 50-meter backstroke, and qualified for the finals second in her class to a swimmer from Spain. Her time was close but not quite as fast as her personal best. In the finals this evening, she swam second again, and her time was a little slower. She went 50.88 in the morning, then 51.35 in the evening. She felt good but a little disappointed that she didn't improve her time. As always, we are very proud of her and she has two more races this weekend.

In the meantime, Marin's having a great time visiting with her friends from all the different swim teams around the country. The more of these meets she goes to, the more she bonds with the competitors, who become familiar, and them become friends. It's quite a unique clique, these paralympic athletes, and everyone is so supportive.

On the home front, Michael and Camie are enjoying their time with Gram and Grumpy this week, with Mike having lots of fun and Camie holding things together as usual. We're all very excited for her soccer team 'The Kickers' who are playing for the state championship Saturday in Olympia. It's been a great season with a wonderful group of girls, amazing coaches, and terrific parents and families in support. We're all pulling hard for 'The Kickers' this Saturday.

We'll update Marin's events tomorrow. Have a great Friday!

Nancy & Marin, Matt, Camlyn & Michael


Wednesday, December 5, 2007 11:08 PM CST


Hello from snowy Maryland!

Marin and Nancy flew in to Baltimore Tuesday night and drove to College Park, where Marin swims in the U.S. Paralympics Open Championships Thursday through Saturday. There's top competition from all over the world here, including Chinese, Japanese, Spanish and Mexican athletes that Marin will likely see again if she makes it all the way to Beijing next year.

After waking up to a blanket of snow, the girls went to the U. of Maryland first thing where Matt met them later in the morning. The first order of business was to go through the classification process with a panel of international qualifiers. There's always a little apprehension to this process because it can be subjective and it can have a profound affect on a disabled athletes career if she's placed in a classification beyond her abilities. Marin, however, was judged to be an S-5 level athlete, just as she was in the spring, so all worked out fine for her. The process, though, was rough on her as she was pulled, pushed and prodded for the better part of an hour, and she felt some pain along the way, and later when she was done swimming. She went through a light workout with Kiko to get used to the pool and she complained about the cold... typical.

All the exertion after the travel proved to be a problem as Marin was sick to her stomach in the locker room. She felt better fairly quickly, and after a big lunch, she took a good nap. Lots of carbs for dinner, then a good night's sleep, and she's ready for her 50-backstroke tomorrow. This is her big event, as she already holds the American record in her class and is just a fraction of a second from reaching the standard for the elite national team. Send up some good prayers for her tonight & tomorrow; it's the first event of the meet and we'll keep you posted on how it goes. With good luck, she'll get two cracks at it tomorrow, in the prelims in the morning and in the finals in the evening. Have a great day and we'll let you know the results. Here's a link for the Open information:

http://www.usoc.org/2007OpenCanAmSWIMChamps.MeetPacket.pdf

Cammie and Michael are home with Gramma Sharon & Grumpy this week. That's another adventure we'll get to later.

Good times,

Marin & Nancy, Matt, Camlyn, Michael, Gram & Grumpy


Saturday, December 1, 2007 2:04 PM CST


Hi all,

Marin's in the home stretch toward the U.S. Paralympics Swimming Open next week in College Park, MD. She's been working hard with coach Karen at the BCC during the week and every other weekend with coach Kiko. Her weekly routine of school and therapy fills her time beyond swimming and it's often exhausting.

We're looking forward to the competition and since it's her first in quite a while there's some apprehension. Marin admits to being nervous going in, which is a good thing, we think, because she tends to swim well when she has the right level of nerves going. We're really looking forward to it.

A very nice gesture was extended by her teacher Ashley this week when she asked Marin to be in her wedding. This really made her feel wonderful and we're looking forward to the wonderful event next summer. We hope all are having a terrific weekend. We're all extremely busy with basketball, soccer, and swimming going on. Plus we're getting the first snow of the winter here in the Northwest... oh, well, we'll have to go skiing!

Have a great day,

Marin & Nancy, Matt, Camlyn & Micheal


Thursday, November 22, 2007 4:32 AM CST


Happy Thanksgiving everyone!

It's been an eventful week already and we're looking forward to a great holiday together and a fun weekend. For starters, both Camie and Michael brought home terrific report cards this week and we have give them their props. Camie in particular has been such a good student and all her teacher comments about her character make us so very proud. Michael received top marks as well and there's no doubt his sister's example of good study is rubbing off.
Marin, too has been a terrific example of fortitude in her school work as she continues to study with Ashley and she never allows her difficulties to discourage her.

On Sunday night Marin was photographed at the Bellevue Club by a local photographer Christopher Watkins who does amazing work with portraits and action shots. He's been doing a series about athletes and he wanted to include Marin. We were very honored that he had heard of her story and wanted to use his artistry to help tell it. We haven't seen the photos yet, but we will share them when we can.

We're looking forward to being together this weekend and sharing some time with friends. We have to also shout out to Camie's soccer team, The Kickers, who won their regional championship and will now take part in the state tournament in Olympia in a couple weeks. What a great team of girls, with great caoches and a great bunch of parents in support. It's been a wonderful season and we feel fortunate that we've been able to be involved.

As always, we are touched by the notes sent by family and friends near and far and please know that we are thinking of you all at this time of year.

Happy Thanksgiving,

Marin & Nancy, Matt, Camlyn & Michael.


Sunday, November 18, 2007 12:56 AM CST


We had a nice week and Marin enjoyed her Eastlake HS swim banquet where she was touched to be named the team's most inspirational swimmer. Her coach Andy Hay gave an emotional presentation at it was really nice, with more than a few tears in the house. For Marin, it's been a wonderful experience to swim with the HS team and although she isn't able to be as social as she wants to be, she really enjoys the contact with the other girls on the team. On Friday, her teammate and friend Kelsey picked her up and took her to the school play for a nice evening out that Marin really enjoyed.

We're looking forward to Thanksgiving this week and thinking of family and friends far away as the holiday season gets underway. We hope you all have a wonderful time and consider all our blessings.

Have a great Sunday,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, November 13, 2007 5:50 PM CST


We enjoyed a nice weekend, and as much as I'd like to say 'relaxing', it was more go, go, go... Marin's swimming continues to go well, Michael's playing basketball and Camie's soccer team is in the playoffs, so needless to say, we've been busy.

We haven't overlooked Veteran's Day and our thoughts and prayers have been with those that served our country, including our uncle John McIntyre who gave his life in the final days of World War II. Thanks to a compilation of news articles and official government correspondence saved by our Aunt Dee, Michael was able to tell a little bit of his story as part of a class project to commemorate the holiday. Probably a little over the heads of the kindergarten class, but the sentiment was nice and Michael now has an idea about the history of his family.

We took some time to go to the movies on Sunday and enjoyed "Fred Clause", while Camie & Mike really liked "Bee Movie". After that, we went to a cool presentation at church called 'F/X' The Family Experience. It was a nice way to spend time together. We hope you all had as good a holiday weekend as we had and enjoy a great week ahead.

Always strokin'

Marin & Nancy, Matt, camlyn & Michael


Friday, November 9, 2007 11:28 AM CST


Thanks for all the wonderful moral support in the wake of Marin's good news. It's great to read all the entries from friends and family, especially when we've been out of touch for a while. It inspires us when we realize how much everyone cares and how Marin has touched so many people.

This week has been a back to routine normal existence without as much medical anxiety hanging over our heads. Marin is settling in to a swimming routine where she's working out mostly at mid-day with coach Karen at the BC. She's also working with coach Kiko and the Seals a couple times a month getting ready for some big meets ahead. Her high school season is complete, although she will be competing in the State meet when the boys swim in February. Each year in Washington, they alternate the disability portion of the meet between the girls meet in the fall and the boy's meet in winter. It'll be a nice incentive for her when she's going through the winter work-out blah's.

In the meantime, she's focusing on the upcoming meet next month in Maryland. This one is the last big international competition before the Paralympic Trials next spring. Some of the top disability swimmers in the world will be at the meet and it will be a great measure of Marin's standing against some of the best competition in the world. Already, according to the psyche sheets, she's among the top 2 or 3 in her classification in each of her events. It's very exciting. Marin's been through a lot in the last few months; the gamma knife radiation was effective on the tumor but there's also been a residual in fatigue. Still, she keeps stroking, through school, therapy and workouts and she continues to shine with such a great attitude. We are so proud of her, as we are of Camie and Michael too, who have been terrific while living with the distractions and general stress of our circumstances. All through it, we feel very fortunate. Marin is enjoying good days and we're very thankful for that. Thanks for supporting us.

Have a great weekend,

Marin & Nancy, Matt, Camlyn & Michael


Saturday, November 3, 2007 11:13 AM CDT


We are so happy today to report that Marin's MRI yesterday showed very encouraging signs. The nodules of growth that appeared so alarming the last time now show distinct evidence that the gamma knife radiation is doing what we hoped. The areas that looked 'hot' before now look burnt and the remaining lining around the areas look to be smaller. It's really wonderful news and we are greatly relieved after our consultation with Dr. Geyer. At the same time, we're taking all the caution not to let up on the fight as this only means there's no visible signs of tumor growth; we'll continue to proceed with good faith and a positive approach, but we know that the cancer is not gone. Our sincere thanks to all of you who read this, pray for Marin, write here and are concerned for our family. We hope you have as wonderful a weekend as we are.

Happy Day!

Marin & Nancy, Matt, Camlyn & Michael


Thursday, November 1, 2007 12:48 AM CDT


Thank you all so much for the well wishes and extra prayers, and now we're asking to keep that coming for another 24 hours. Earlier this week I mistakenly wrote 'Thursday' as the day... oops, my bad.. the MRI is actually on Friday. So we're still in the anxious anticipation mode for another day and we appreciate all of your concerns.

In the meantime, life is always worth living well and we've enjoyed a fun week. Halloween last night was a great time with friends around the neighborhood, beginning with a pizza party for the trick-or-treaters, then the annual candy harvest conducted at top-speed. Having a 5-year old helps us all relive the glory years and Michael was as excited as a boy could be. This year, he introduced a new twist on his favorite costume; he went as the Black Spiderman! That's Spidey after he was infected by the alien tar from outerspace. Anyway, Mikey was thrilled with his costume, which was acquired by our friend Donna who came through big when we were having a tough time finding it in his size. Thank you Donna! Camie had a great time going around with her friends in the neighborhood, while Marin patrolled the front porch passing out the treats to children. Nancy must have done an incredible job, because she prepared over 100 goody bags and they were gone long before the Great Pumpkin showed up.

Marin has had a good week working out in the pool and studying her lessons. We were thrilled with the news on Monday that Marin's teacher Ashley is now betrothed!! Her best man Fred popped the question over the weekend and Ashley said, "Umm... okay". Good times and a big congratulations to Ashley & Fred; we're looking forward to her wedding next summer.

Again, we're heading in for the MRI Friday and we'll keep you posted with the latest information. Thanks for keeping Marin in your thoughts and prayers.

Happy All Saints Day!

Marin & Nancy, Matt, Camlyn & Michael


Monday, October 29, 2007 8:15 AM CDT


With apologies for the delinquent entries this week; we've had real problems getting our computer working and now it's back up & running. Our freind and neighbor Hugh spent hours with us over the weekend cleaning out viruses and we are fantasticly in debted to his generosity and know how. Thanks Hugh!

We had a nice weekend with the whole family hanging around, carving pumpkins, playing games, and enjoying some terrific weather here in the northwest. The colors have been popping this week and it really is something to see. Friday we all went swimming at the Bellevue club as Marin did her daily workout. It's really beautiful to watch her move through her strokes so gracefully, back and forth, and you know that physically it's the most peaceful time of her day.

This week we're asking for a little extra prayer as she'll be going in for an MRI on Thursday morning. This will be the first look since the post-gamma knife pictures looked somewhat alarming. At the time, about six weeks ago, the consensus among the brain tumor board was that the areas that looked active were the parts that were radiated, so it would not necessarily be bad that they looked a little swollen. This time around should give us a better idea how effective the gamma knofe was and then what we should be thinking about doing next. Obviously we're a little anxious, but Marin continues to be in good spirits and is enjoying good days. Thanks for all your emotional & prayer support.

Have a great Monday,

Marin & Nancy, Matt, Camlyn & Michael


Saturday, October 20, 2007 8:58 AM CDT


Friday Marin swam in her final high school head to head meet for the season and it was a little emotional for her. She performed well, her times were on her marks, but she's a little sad she won't be seeing the team as much anymore. It takes some time for Marin to get to know people (and for them to know her), and I think she was just starting to get closer to some of the other girls. Nevertheless, she's had a great time swimming on the team again this season and there will be a banquet and such coming up, so she's looking forward to that. There is one more meet for her too as she'll be able to swim in the disabled events at the Washington HS State meet in a few weeks. She's looking forward to that meet again this year.

Also today is another occasion for a little emotion as Marin's friends from the hospital in GA are having a 'rehab reunion' back at Scottish Rite Hospital. Marin worked, struggled, and survived with a host of other patients and made a few very close friends, including her pal Stephanie who stays in touch all the time. Marin is sorry she won't be able to make it to the reunion but she's thinking of her friends on this day. Thanks as always for the kind notes and the prayers.

Have a great weekend,

Marin & Nancy, Matt, Camlyn & Michael


Sunday, October 14, 2007 11:40 AM CDT


It's been a relaxing weekend coming off a strong performance for Marin in her high school meet Friday night. Swimming a leg of her team's medley relay, she clocked 44 seconds in the 50 yard backstroke, which indicates she's keeping up a good pace and she clocked about the same when she swam the 50 yard free (on her back) starting from the blocks. Marin's excited to see her old pal Naomi as they got together this weekend for the first time since Naomi moved away over the summer.

More accolades for Camie this week as she was named one of her school's "Students of the Month". A handful of students from each grade win the honor after getting nominated by their teachers. A great way to start the school year, Way to GO Cammie!

This week we're keeping our Uncle Bruce Pfister in our prayers and please remember him in yours as well. He'll be undergoing treatment for prostate cancer this week and he needs our support. Aunt Jeannie and Ben too, although I can't think of a better role model in the fight against cancer than our Aunt jeannie. She has had such a positive attitude through two bouts of her own, and she's been wonderfully supportive of Marin for more than two years. We love you and you're all in our prayers.

Stay strong,

Marin & Nancy, Matt, Camlyn & Michael


Thursday, October 11, 2007 10:47 AM CDT


It's always so nice to read notes from first-time writers in Marin's guestbook, many of whom say they've followed her story for a long time, and hearing from friends for the first time in a while. Reading the entries always gives us a lift.

We had more than a few people inquire about the event in December so here's the info. Marin will participate in the U.S. Paralympics Open Swimming Championships in College Park, Maryland from December 6-8, and you can read more at:
http://www.usoc.org/paralympics/swimming_teams.html

We'll arrive the evening of the 4th and stay until the 9th. A number of swim friends are from the area and have mentioned the pool at the U. of Maryland is really fast! Our Olympic friends Mark Henderson (the new dad) and Bruce Schumacher are both from the area, as is Marin's high school coach Andy Hay. A number of current swimming stars live and work-out near here including Jessica Long from the Paralympic team.

For now, Marin is focused on her workouts and enjoying the Eastlake High team. She's swimming in a meet Friday evening where she'll enter the 100-IM for the first time since she returned to the pool. She's nervous about the competition, especially because she doesn't think she does the breast stroke very well, but coach Andy is confident she can pull it off. It's good that she continues to be challenged in different events. We hope all of you are dealing well with your challenges too.

Still feeling good and swimming strong,

Marin & Nancy, Matt, Cammie & Michael


Monday, October 8, 2007 7:30 AM CDT

Good morning. It's monday and time to get back to the drawing board. As probably every mother out there, I have been up half the night worrying about various things I need to do this week for Marin. The school issues still remain very much unresolved. They routinely send us "dear John" letters, occationally call, but don't seem to be able to follow-through with the services she is entitled to and needs.

We have had a few nice and relaxing days over the weekend. Last Thursday was busy with therapy, school with Ashley, and Eastlake swim practice. They had a meet on Friday but Marin did not participate in this one. A friend of ours, Delann Elliott, lost her husband 7 years ago to brain cancer and started a Fund to raise money for research. She has an annual golf-auction day which Marin and I attended the dinner. It was very encouraging to hear a Doctor talk from the Dana-Farber Cancer Research Center regarding all the new trials that are beinging for brain cancer. Marin's type may not be able to benefit, but it's wonderful to see things happening in the brain tumor world.

As far as Marin's tumor, we are waiting once again for an MRI in about 2 weeks to see if we can see how the Gamma Knife is working and make sure nothing else is festering in there.

Saturday Marin enjoyed staying home watching a movie, working on scrap-booking and looking a photos, and spending time with our little spidey, Michael. Now that he's in school, Marin isn't being able to spend all the time she had before with him. He is still so adorable with Marin and brings her such joy. His new activity is trying to knock Marin down. It's great therapy for her also.

Sunday we went to swim with Kiko, the paralympic coach here in Seattle. Marin really enjoys this time she has with her.

Another concern with dear old mom here is Marin getting some new friends. She had a few girls whom had become good friends with her, two went to college, and one moved to California. I hope and pray that someone steps up and recognizes that Marin needs a friend. Since those in Seattle didn't know Marin "before," I can see it being hard to step out of a certain comfort zone to become her friend. Even someone to go to the movies with her occationally would be nice. Please pray with me that this can happen for her so her social life can be a little more fulfilling. I know I'm a great mom but she gets sick of hanging out with me!

Marin continues to be so happy. A few days ago she was discussing her various things that have happened to her. She made the conclusion that if anything on her body didn't work at all, she thinks the arm is a good choice (like it was a choice!). She said it's wonderful that she can walk, and still have one arm to do so many things with. It's quite impressive watching her do most everything people with two hands do. Zipping her coat, tying her shoes, eating, etc. I still have a hard time with the physical hardships she has encountered yet her strength holds me up. I'm sure her strength is helping hold a lot of you up as well.

Thank you soo much for supporting our family, holding us up in prayer, and following Marin's path with her. We are so thanking we have this site to lift her up with kind words and truely wonderful friends all over the world. I think she really content with this.

Have a wonderful week and I will check in tomorrow.

A big hug, Marin and Nancy
Matt, Camlyn, and Michael too!


Wednesday, October 3, 2007 0:30 AM CDT


Hi All,

We can't tell you how wonderful it is to check in each day and read all the wonderful messages from family and friends, far and near. It always lifts us when we know so many of you are out there thinking of us regularly. Marin is really enjoying reading her messages and she's doing better and better at trying to respond to some on her own. She's working with Ashley to try to get her e-mail skills together so she can communicate with her friends more regularly. So far it's slow, she responds to one or two a week, she's very courageous in her effort and she's gaining confidence as she goes. Just this week she exchanged e-mails with an old friend Evan from Collins Hill, then muscled up enough courage to make a phone call and say hello. It was big for Marin and she was very happy after speaking to Evan on the phone.

This week in the pool, Marin continues to show strong improvement with her new technique. In her high school meet last Friday, she lopped two seconds of her time in the 100 backstroke, then again today (Tuesday), she took two more seconds off in the same event. We're very excited to see how she'll do in her last big paralympic meet for this year, that's coming up in December in College Park, Maryland. She's very inspired and training hard for this event.

We're still having a little trouble getting school serviced on-board this year as the schedules for teachers and therapists have not been connecting very well and as a result, Marin's been missing out on several hours of important work each week. The struggle is never-ending and Nancy is doing her best to advocate for Marin each day. We're all working hard and we appreciate your love and support.

Happy October,

Marin & Nancy, Matt, Camlyn & Michael


Monday, September 24, 2007 9:19 AM CDT


Marin had a pretty exciting performance in Friday's High School meet for Eastlake. She had been working on some new techniques for her backstroke and when she put that to the test in a race, the results were terrific. Swimming in the JV 100-yard backstroke, she took about 8 seconds off the time she had a week earlier, and she finished second out of three competitors in her heat (it's always impressive to see her place ahead of an able-bodied swimmer). We were all very proud of her, and deep down she was happy too, but she still has that sense that she should be as fast as she once was in the pool, so she takes these accomplishments with a bit of a sideways smile. She also swam in a relay race and again showed well and just being part of the team and getting in to it with the other girls is really good for her.

On the health front, we're still in a wait and see situation. Still a bit nervous about what might be going on in her head, but we have to allow the radiation to have it's affect, so until we take another MRI in a few weeks we're asking for prayers that her cancer is being defeated. Marin is feeling good and looking good and all the outward signs are positive. Thanks to all for your support in spirit.

A special high-five to Cammie this week as she came home with a note saying she's qualified for the National Honor Society for her classroom performance at school. Through all the stress and difficulties we've been through as a family, Cammie has never let us down and she continues to excel at everything she tries. She's a great child and we're so wonderfully proud of her.

Have a great week,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, September 18, 2007 8:59 AM CDT


We've had a little more comforting opinion on Marin's MRI reading when we were able to speak to the attending radio-surgeon who performed the gamma knife proceedure. After he took a look at the results, he noted that he expected to see the swelling that we did and that is likely a typical reaction to the radiation. All three areas where we saw increased growth or swelling were the areas that he targeted and that is the type of swelling that should be expected within a month or 6 weeks of the gamma knife. This still doesn't mean that growth hasn't occurred, but it gives us hope that perhaps it hasn't and we'll continue to watch closely for further developments as we consider the next option.

In the meantime, Marin continues to smile happily throughout her day. On Friday, she competed with her Eastlake swim team for the first time this season. She had fun swimming the 100 backstroke and a leg of the 400 free relay. It was a good time being with the team and although she was not thrilled with her performance, but she certainly was inspiring to a lot of people at the pool and several people made a point of telling her so.

On Sunday we had a very special afternoon when Marin met Brad Schumaker at a local pool for a couple hours of one on one swim instruction. Brad is a former U.S. team freestyle sprinter who won a gold medal at the '96 games in Atlanta, and then earned a spot on the U.S. water polo team for the 2000 games in Sidney. His clinic lesson was donated as an auction item for a Microsoft company charity event and was claimed by our friends and neighbors Jeff and Janet and they graciously presented this to Marin. So we all went to the pool Sunday where Brad & his brother hosted us for a couple hours. It was clear that Brad was well prepared to help Marin with her approach to competition and after speaking about the mental aspects for a while, they hit the pool for some specific stroke instruction. Brad was very astute in helping Marin fine-tune her backstroke, butterfly and dolphin kick. He was very friendly and fun and we all enjoyed the experience. He also showed us his gold medal and allowed Marin to wear it around her neck to get a mental template for her success next year. It was a really good time, Jeff & Janet came along and seemed to enjoy it too, and we are very grateful for their generosity.

Marin received some nice mail this week including a note and a check from her friends at Collins Hill High in Georgia. It was very nice for her to get this gift and know that all her friends back in GA are always in her corner. The Wave of Courage Foundation also came through with a sizeable donation that's going to be a big help this month and next as we take in some big expenses, so thank you very much Wave of Courage!

We're looking forward to another good week,

Marin & Nancy, Matt, Camlyn & Micheal.


Thursday, September 13, 2007 11:31 PM CDT


It's taken us a few days to sort out the results of Marin's MRI on Tuesday, so thanks for being patient with our updates. The MRI was taken Tuesday afternoon and we waited until Dr. Geyer met with the tumor board on Wenesday to take a full consultation on the latest pictures. We were alarmed to see that the areas that had been zapped with the Gamma knife last month looked prominent and seemed to be growing and there was a third spot that appeared to be new in the area between the other two. Indeed this is alarming, but at the same time it may be too early to tell just what the affect of the radiation really is or what it will be. After looking at the results and discussing it with the other doctors on the tumor board, Dr. Geyer relieved our fears a little by explaining that the swelling of the areas that were radiated is common and that the third area was also a targeted radiation spot so the swelling could simply be the affect of the radiation on these areas and hopefully they recede. Of course we will continue to proceed as if the worst-case scenario is in affect, so we're exploring the chemotherapy options while we wait a little longer. We're encouraged knowing that there are treatments available that we know can be affective and that there are some new clinical trial drugs that are promising as well. We feel we have good options when the time comes to do more chemo. In the meantime, Marin continues to do great.

On Sunday, we visited the home/studio of our friend Lynnette Johnson who operates Soulimanation, a foundation for families touched by the illness of a child (check out http://soulumination.org/inkind.html). Lynette took the photos of Marin seen here on this website; she was the subject of a recent award-winning documentary and she had a viewing/fund raiser at her home. It was nice to visit with her and others we're acquainted with through her work, including Deb & Char Eberhardt (Marin's friend Molly's parents) who actually volunteered to help operate the event. Marin felt special as she was featured in a poster with UW hot-shot quarterback Jake Locker that Lynette photographed as part of a fundraiser. We all enjoyed the afternoon.

Marin received a nice surprise in the mail today when she opened up a package from the US Paralympic team. She was presented with lots of team clothing, from pull-over sweat shirts and sweat pants, to work-out shirts, shorts and hats. All cool stuff with team USA logos and everything. It's really neat and we were all thrilled for Marin.

On the school front, she's been working with her teacher Ashley on using the computer more and Marin's really starting to enjoy doing more for herself with the keyboard. Today they wrote to Marin's friend Ashley who's in college at Columbia and she was very proud to get the e-mail going. Please don't stop writing here on her guestbook, but if you'd like to write directly to her you can now at:

supermarin90@hotmail.com

Also from old friends, Marin received an uplifting card from her good pal from SwimAtlanta Sarah Looney who'd now a freshman at the University of Pittsburgh and from our cousin Jim McIntyre in Ann Arbor, a nice note with a gift of a signed swim cap of Michael Phelps! How cool is that! She still totally digs Aaron Piersol, but Phelps is no slouch. And then to top it off, earlier today she received a phone call from her rehab pal Stephanie who continues to move forward with her life in Georgia and the two had a nice chat on the phone. Good friends is what life is all about.

Enjoy the rest of your week,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, September 11, 2007 9:43 AM CDT


Settling in to a back-to-school routine here is anything but routine. Marin's therapy schedule and swimming workouts are all over the map and Cammie and Michael's activities are demanding more and more attention as well, but so far we're managing to hold it together. I know, everyone's going through it this time of year.

Today we're calling for a little extra prayer as Marin is going in for her follow up MRI after the gamma knife treatment a month ago. We're not expecting to see any dramatic change but we're certainly praying we don't get any further surprises. After the MRI, we'll consult with Dr. Geyer about what we might consider next. It may still be a wait and see situation and we'll continue forward.

For her part, Marin is feeling good and looking great. Her beautiful smile is as dependable as an oak tree and she never fails to brighten our day. She's been working hard with her Eastlake High team and is disappointed she'll miss a swim meet this afternoon due to the doctor's appointment. We wish the wolves good luck and she'll be back in the pool tomorrow.

Have a great day,

Marin & Nancy, Matt, Camlyn, & Mikey

*We remember 9/11/2001 and honor all those who lost their lives in NYC six years ago today.


Saturday, September 8, 2007 11:16 AM CDT

Wow! The Brewster's ice cream social just seemed amazing. I can even tell everyone how touched Marin continues to be at kind acts such as this. She would love, love, love, to be able to come down the Atlanta and visit everyone. I'll have to work on that.

School started this week for the Morrison household. Michael attended his first day of Kindergarden. He informed me that he has been "waiting his whole life for this moment." When we lived in Atlanta, the big, yellow bus stopped right in front of our house. Here in Seattle, the big yellow also stops right in front of our house. For five years, he has been watching children getting off and on but only dreaming of the day that he would. Well, that day came and his smile couln't have been any bigger and more joyous. He seemed to do fine in the classroom as well although I really could'nt get mich information from him.

Cami is in 8th grade and enjoying everything about it. She is such a happy and positive person. Her presence makes everyone around her feel good and I am so blessed to have a 13 year old who acts so wonderfully. She is going to start taking numerous dance classes next week and is very excited about that.

Marin's school, although she's not attendind classes at school, has started off well. She continues to get tutoring from Ashley who is so wonderful for Marin. We aren't seening her as much as we got to last year due to Marin's swim schedule and Ashley taking on some extra school things. We have another teacher, Shelly, whom is filling in some of the time so Marin can get as many hours as possible. Shelly is a wonderful lady as well. Marin also is swimming on the Eastlake High School swim team. This year she is riding with a young lady named Kelsey who also swims on the team. It's wonderful since both her and I get about 3 hours away from eachother. Not that she doesn't love me dearly, but, I am her Mom and she is 17!! Also, that allows me to be able to get Michael off the bus when he gets home from school.

We are having difficulty with Marin's therapy situation which hopefully I can come up with a better solution. The insurance cut us off from having the therapist come to our home. We now have to travel to various places for Marin to get therapy. For instance, this friday she had an ocupational therapy session. It was one hour and it took 3 1/2 hours due to travel time, parking, walking to the building. Marin was completely wipped out after that. We are supposed to be able to do this 4 - 6 times per week. NO WAY! It is exhausing for Marin to have to get ready, get in and out of the car, and waste all that time. Instead of getting to spend that time sleeping, she's sitting in the car. This is turn, will affect her swimming. You can't swim good if you're exhausted. She's also not getting any nap time built into the day. Friday she was so tired that she came home and went to bed at 5:00. Hopefully I can fix this situation some how.

The weather is beautiful and sunny today. Cami is playing at a soccer game right now. Marin and I are reading all your lovely entries and thinking about all our friends.

Happy day, Marin
and her gang


Sunday, September 2, 2007 0:27 AM CDT


WOW! We want to express our warmest appreciation and deepest gratitude to all our wonderful friends in the Gwinnett County swim community who've continued to support Marin and our family in so many ways, most recently the amazing turnout at the Ice Cream fundraiser through Brewster's. The photo in the guestbook courtesy of our good friends and neighbors Pam & Scott Karlins absolutely brought tears to our eyes. Marin can't believe that everyone still thinks of her so fondly and she was thrilled to see the photo with her name on the marquee. Here's a link to the story in the Atlanta Journal Constitution:

http://www.ajc.com/search/content/metro/gwinnett/stories/2007/08/27/morrison0827g.html

The financial support is a big help and more importantly the moral support and prayer support lifts us through each and every day. Thank you so much.

Also this week, another article in the upcoming edition of Splash Magazine highlights an effort by two very kind twin sisters from Bellevue High here in the Northwest who've organized another fund raising event to include swim clubs all across the country.

http://www.usaswimming.org/USASWeb/ViewNewsArticle.aspx?TabId=0&Alias=Rainbow&Lang=en&ItemId=1713&mid=2943

...And this one is the USA Swimming feature that precedes the current feature on Marin's good friend from Swim Atlanta Kathleen Hersey who's had a terrific summer swimming at the nationals where she won two National Championships (way to go Kathleen, we're so proud of you):

http://www.usaswimming.org/USASWeb/ViewNewsArticle.aspx?TabId=0&Alias=Rainbow&Lang=en&ItemId=1714&mid=3204

After arriving home from visiting in SoCal on Thursday evening, Marin has been getting reacquainted with her high school swim teammates. She attended practice Friday and took part in a mock swim meet as all of her teammates are getting ready for the first meet of the season next week. Marin needs to participate in ten consecutive workouts with the team in order to be eligible, so she won't be able to take part in competition until a week later.

September arrived with bright sunshine and blue skies, a hopeful omen for the onset of an Indian Summer. Taking advantage of the nice weather, Marin joined her teammates and some of the parents on Saturday morning for a shift at the team's fund-raiser car wash in Sammamish, and we thank everyone in the area who stopped in to have their cars spiffed-up by the Eastlake Wolves swim team. Marin enjoyed being with the girls and held her own as the premier one-handed car washer in town. Later that afternoon, the team bonding continued with a cookout at a local lake and again, Marin enjoyed the company of the girls on the team as she gets to know them better. She truly appreciates these opportunities for social interaction because she gets so little of it compared to other teenagers. It's nice that's she's been accepted so readily by the girls and it's impressive that she's so comfortable with herself despite her speech and mobility issues. It may be hard for her to carry on a conversation, but it's easy to see why people find her so approachable, she's just cool. It's nice to have that kind of support.

Enjoy the remainder of your holiday weekend,

Marin & Nancy, Matt, Camlyn & Michael


Thursday, August 30, 2007 1:40 AM CDT


On the last full day of vacation before traveling Thursday, Marin took full advantage of her cousin's the Cavarnos most excellent backyard pool, getting up early and going through a good strong workout first thing in the morning (and yes, the pool is big enough to effectively swim laps). She was feeling especially dangerous since she did her workout in a bikini, something she would never do with a coach. But this week, she did a great job of working herself out and was wearing out Nancy when they worked together. She's very fired up about returning to practice with coach Karen and also with her high school team on Friday.

After celebrating Gramma Shirley's birthday Tuesday night, all the girls made a day of it together on Wednesday afternoon. Gramma & nancy, Marin, Camie & cousin Katrina all went out for manicures/pedicures and pampered themselves a little. Marin now has bright blue toe nails decorated with flowers. An afternnon nap was followed by more visiting as Nancy's Aunt Donna and cousin Karen came to have dinner with the girls. Karen has been such a nice supporter of Marin and although she lives in Hawaii, she always make an extra effort to visit Marin when she's nearby. Everyone enjoyed dinner out on the town and the partying went late. That's what summer vacation is all about.

Enjoy what's left of August,

Marin & Nancy, Matt, Camlyn & Michael


Sunday, August 26, 2007 11:37 PM CDT


It's been a fun weekend on vacation in SoCal where everyone's had a wonderful time visiting with cousins and such. Friday we all met at Sea World and spent a long day enjoying each others company and getting splashed by whales and nibbled on by dolphins. On Saturday, the gang drove north from Uncle Hal's in OC to camp at Uncle Ron's in Westwood for a couple days. Ron & Teryl's three boys are all 6-under and Michael has a great time with his cousins Landon & Toby. Caleb is 8 mos. old but he goes right along doing all the stuff that the 'big boys' do. And Timmy has been along for the ride as well. Saturday Marin went for a workout at the local YMCA where uncle Ron swims and made some fans among the members there. Then everyone spent the day at the beach and mostly had fun on the Santa Monica Pier where they played games and went on rides and saw where Matt proposed to Nancy 20+ years ago. After a great day at the beach everyone was pooped out so they slept soundly in to Sunday.

Today they spent the afternoon cruising around the UCLA campus where we're hoping Camie is impressed enough to start thinking about her college choice. We have such good memories of our days on campus at Westwood and we're always excited to go back and visit. Of course the visit wouldn't be complete without a stop at the DiDi Rees ice cream shop in Westwood village for the best ice cream sandwiches on the planet. For dinner, the gang jumped the gun on Gramma Shirley's birthday celebration and ate at Acapulco Mexican restaurant where Nancy and I have fond memories as well.

After the chow-down, everyone piled in the cars and drove to Redlands to spend the rest of the trip at the Cavarno's house (best back yard pool ever). Everyone's spending lots of energy but still have plenty of gas left in the tank. Here's to the remainder of summer vacation.

Enjoy,

Marin & Nancy, Matt, Camlyn & Michael


Friday, August 24, 2007 0:47 AM CDT


Having a good time in SoCal this week, but not shirking responsibilities, Marin has started her days with good, strong workouts at the YMCA near uncle Hal's house and Nancy's been joining her as a workout partner. Wenesday, they drove down to San Diego to see our good friends the Christys in Carlesbad. Sheri is Nancy's closest friend from childhood and Mark is one of Matt's best buds growing up and they married after meeting (and making out) at our wedding. It makes for fun double dates at all our high school reunions and cross-checking on old stories about the good 'ol days.

Thursday at was back to OC for sand and surf after the morning in the pool. Camie has been showing off her skills on a surfboard and Mike is all over the boogie board so Marin felt the need to get in on the waves. Maybe not such a good idea. For all her courage and willingness to meet a challenge, the rough surf and rocky beach were a bit too rugged for Marin on this day. She's great once she's all the way in the water, the problem is getting past the waves crashing on the rocky shore. Her crack at boogie boarding ended in a shoreline thrashing; humbling but not hurting, Marin was still smiling despite the failed attempt. Camie came to her aid and of course Michael was full of advice on how to successfully navigate the Pacific on a 2' by 3' shaped piece of sturdy foam. Sunbathing had to be enough for her today, but don't be amazed if she tries to body surf again the next time.

TGIF & enjoy a great weekend,

Marin & Nancy, Matt, Camlyn & Michael


Wednesday, August 22, 2007 0:56 AM CDT


This week started off nicely for Marin as she was reunited with friendly faces from her Eastlake High swim team on the first day of practice Monday. Marin was happy to see her teammates, most of whom she hadn't seen since the end of last season. The wolves have anew coach this year and she's impressed already, although she was sad to learn coach Emily wouldn't return. Marin already did her afternoon workout for the day so she didn't swim with the team and she won't see them again until school starts because she's off for the final vacation of her summer.

Mom, Marin, Camie & Mike left for southern California Tuesday where they'll spend the next ten days enjoying the sun & surf. Marin swam at the local High school in Redlands when they arrived this afternoon, and will continue her workouts through the week. Everyone was thrille to get together with the Cavarno cousins and Marin was especially happy to see her 'twin' cousin Katrina. They gang will also visit Uncle Hal & Aunt JoJo's family down at the beach in Orange County and Uncle Ron & family in Westwood. And of course, they'll hang with Gramma Shirley a lot over the duration of the visit.

Hope all are enjoying you last bit of summer before school,

Marin & Nancy, Matt, Camlyn & Michael


Saturday, August 18, 2007 12:04 AM CDT


I don't know if it was because of yesterday's entry, but Marin's had such a nice response from friends far and near. Many of you have written here in the guestbook and we always appreciat that. At the same time, Marin received a phone call from her great swim pal Jordan in Georgia this morning. She really lit up when she heard her voice on the other end of the line and she's been smiling ever since.

On Friday, Marin enjoyed a nice afternoon with Molly and Ashley when they went out to the movies together. They teamed up to see "Before She Was Jane" about the author Jane Austen, with Anne Hathaway. Marin reports that it was a good film but sad at the end. She admits all three of them teared up a bit at the end (chick flick). It was nice for her to spend time with these two terrific young ladies who are both going off to college back east next week. We will all miss their friendship but look forward to seeing them again when they visit home.

Sadly, we're also saying so long to other important people this week as Marin's in-home therapy is coming to an end. Unfortunately, for insurance reasons, we're running out of coverage for this year and we'll be doing our best the rest of the way. Our excellent OT Beth made her last visit with Marin this morning and she was as sad as we are to see this come to an end. Beth has been an amazing therapist and a great friend and inspiration to Marin. She has always been looking forward to the next innovation that can help Marin with her daily routine. She has brought in a number of kitchen utensils that Marin is able to use and she was the impetus for the Saebo Flex apparatus that Marin uses to work her afflicted right hand.
Beth, Jessie, Sue, Andrea and so many others have helped Marin take such great strides forward and they've come to be good friends.

We're always thinking of friends far and near and we look forward to hearing from you anytime.

Have a wonderful weekend,

Marin & Nancy, Matt, Camlyn & Mike


Friday, August 17, 2007 5:43 AM CDT


Back in the pool and swimming strong this week, Marin is feeling better but still a little dizzy from time to time after the radiation last week. She certainly is inspired to get back in to shape and it's taking a little extra effort because she hasn't had much of an appetite; we've had to really focus on getting her nutrition. It's challenging when she's on such a strict diet and she's quite weary of the limited types of food she can eat... one can only take so much fish and broccoli, but Marin keeps taking it.

Lately, as the summer days pass, we're saying so long to some important friends in our lives. Our good friends and neighbors down the street, the Gemmels, moved this week back to the Bay Area in northern California and it was bittersweet for us all. Marin had bonded with Naomi and Nancy became good friends and work-out partners with her mom Elizabeth. Michael was good pals and skating partners with her daughters Sarah and Miriam and we're all going to miss them but we're sure we'll see them down the line. Happy trails. At the same time, some of Marin's friends from the BCS team are getting ready to go off to college so she'll be missing them as well. Molly has been such a wonderful friend and they'll be getting together over the weekend before she heads off to Middlebury in Vermont. And Marin has grown close to another swimmer Ashley who'd been very kind and she's getting ready to go to Colombia next week. True, change is the only thing you can really count on in life and it's wonderful to see these friends grow and move on, but it's still hard to see them go. We're thankful for the time we've had together and look forward to seeing our good friends again sometime in the future.

Enjoy your good friends this weekend,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, August 14, 2007 0:38 AM CDT


A week has passed since Marin underwent Gamma Knife surgery and we're happy to report she seems to be reacting just fine. She suffered spells of dizziness for the first couple days, but they gradually waned and she's getting beack to a normal schedule this week, including swimming. One of the issues are the four areas on her scalp where screws were inserted for the stabalizing halo. These wounds are healing nicely and Marin was only too happy to remove the one band aid that was on her forehead all week. As always, her attitude has been great and she continues to shine right through the adversity.

It will be seve3ral weeks before we may know how this treatment will affect what we can see of the tumor, so we're still a bit anxious for now, but we have faith that this will be affective. At the same time, we're always lining up the 'what next?'. Any input you have is always appreciated.

An eventful week was marked by our 20th wedding anniversary on Wed. August 8th. We shared dinner out that evening and then truly celebrated by enjoying a wonderful gift from our good friends in Jacksonville who pitched in and bought us a dinner and overnight stay at the Seattle W Hotel. We had a great night being urbanites for the evening and the next morning as well. Thank you to the gang at WJXT, and most notably our wonderful friend Robyn, for sending us on an amazing and unforgettable night on the town and frankly, we needed it bad! And it was good!!

Enjoy each other,

Marin & Nancy, Matt, Camlyn & Mike


Tuesday, August 7, 2007 5:39 PM CDT


Please pray for Marin's healing after she underwent gamma knife surgery today at Harborview Medical Center in Seattle. After lots of consultation with several doctors, we decided that now is the time to zap the tumor with the radiation. Even with the decision made, it was an anxious morning as Nancy was feeling particularly apprehensive when Marin was fitted for the stabalizing halo brace that's necessary for the proceedure. This requires the drilling of four screws into her head to completely immobilize the skull. In typical fashion, Marin handled the situation with complete grace. The radiation took less than a half hour but they spent about seven hours at the hospital altogether.

Marin was feeling fine afterword, well enough to go out for a late lunch with mom. She'll likely feel some extra fatigue increasing over the next few days but in general she'll feel pretty normal. The biggest issue is the four areas where the screws were inserted in to her head. She'll likely be feeling that pain more and more over the next couple days and she's been told she can't go swimming for a week or so.

From here, we watch and see. We have chemotherapy options available if we see that need, but it will be several weeks, if not a few months before we see what affect the radiation has and if there's a need for further treatment. We hope and pray for the best and know that Marin's spirit gives her the very best platform to beat this episode.

Thanks for enduring with us,

Marin & Nancy, Matt, Camlyn, & Michael


Friday, August 3, 2007 1:37 AM CDT

Good day all of Marin's faithful readers. Today was yet another emotional, decison making day. Because of the great decision, we have remained undecided as we close our day.
I have talked with several docs today, all with different opinions. My conclusion, the oncology docs say to go with the drugs. The radiation docs say to go with that, and the neurosurgeons say to go with surgery. Ultimately, we have to make the decision. The odds for all of them aren't good. On the otherhand, they never have been. If anyone in this entire world can beat the odds, it's our Marin!
We are leaning now with Gamma Knife first, then the avastin, CTp11 drug, then the Burzynski clinic, in that order. Any feed back would be greatly appreciated. The clinical trial sounds good but no one with Marin's type of cancer has been in the trial. Actually, Marin is the only person recorded in the world with her type. She always has to stand out in the croud.

Marin's only focus is that she only wants to swim. Her 6th and 8th world ranking has motivated her so much that she feels nothing will stand in her way. Marin is living to live and swim. A lot of people with agressive cancer wake up living to be sick. In our decision process, we will greatly consider thatr Marin can live to be strong and swim.

Please pray for the miracle for the tumor to go away. Please pray for her to continue to be successful at swimming and achieve her goals. Please pray that the family will hold it together.

thank you for your prayers. Thank you for your support.

Fondly, Marin and Family
Nancy, Matt, Camlyn and Michael


Wednesday, August 1, 2007 3:32 AM CDT


We did receive the results of Marin's PET scan Tuesday afternoon and we're still in the decision making process. The tests show that, at least technically, there are cancer cells growing in her tumor. The positive spin as that the PET metabolism wasn't terribly 'hot', meaning this looks to be slow growing and thus we have the time to be prudent about our next move. The better news is that much of the remaining lining of what was the tumor show no signs of metabolism at all and so we can reasonably believe that it's now dead tissue. The results will be discussed by Dr. Geyer and his colleagues at the weekly tumor board meeting and we'll consult with him after that. The possibilites include minimally invasive surgery to draw a sample of the tumor for a biopsy (we want to avoid this); the gamma knife treatment (which we believe won't completely eradicate the cancer); and then the preferred chemo treatment with Avastin and CPT-11. We'll let you know how it goes after we consult with the doctors Wednesday.

We appreciate the prayers,

Marin & Nancy, Matt, Camlyn & Mikey


Monday, July 30, 2007 0:59 AM CDT


It was a whirlwind week so here's the latest on all we've been through and what we're look ahead to. We met with doctors at UW Med Center to consult about the possibility of doing gamma knife radiation, and while this remains a viable option if there is a pressing need to reduce the size of any tumor that's growing, it won't be our first course of treatment. All agree that there are other alternatives to consider first.

So on Wednesday we met with Dr. Geyer, Marin's neuro-oncologist at Children's Hospital and the meeting was encouraging in some ways we weren't expecting. Dr. Geyer continues to look at her latest MRI very closely and simply isn't positive that what we're seeing that looks like tumor flare-ups may not necessarily be more tumor. Her case of astrocytoma with ganglioglioma is very rare and this case in particular has behaved so unusual compared to his experience that Dr. Geyer just isn't thouroughly convinced what this is, so he's giving this case thorough attention. To that end, he ordered a PET scan, which Marin underwent last Thursday at UW Med center and we're waiting for the results either this Monday or Tuesday. The Pet scan is designed to measure the metabolism rate of the cells it projects, thus if the scan show areas with particularly high metabolism, or a 'hot' reading, then the doctors can be just about certain that we're dealing with cancer cells that are growing. We should know by Tuesday. We also discussed the possibility of going in for a tissue sample and having that biopsied, but none of us want to go that route id at all avoidable.

So now we're waiting on test results and we have a likely course of treatment with a drug called Avastin and CPT-11 in compbination that has shown relatively good results on brain tumors (40-50% affectiveness). We'll see and we'll keep you posted.

In the meantime, the great news is Marin continues to feel really good and on Friday she swam in the big PNS swim meet in Federal Way, WA where she took part in the 50-backstroke with able-bodied swimmers. Marin clocked in at 49.86, which was better that half a second faster than the time she logged two weeks ago at the CanAm meet in Vancouver. The time would lower her own American record, but the meet wasn't sanctioned as a disabled event, so it's unofficial, but still a great sign that she continues to drop time. She was very proud, as were coach Karen and Klaas who were there. Marin also saw her friends Molly and others from the Bellevue Club team, as well as Ariana Kukors, who's one of the top swimmers on the US National Team and who's family has been very kind to us since we moved to Washington.

After the meet Friday, we piled in the car and drove with our good friends and nighbors Tammi and Rob out to the Columbia River in eastern Washington for a weekend and camping and boating. It was a blast, as the weather was beautiful and the river was fun. We had a little adventure with a big wind storm and our tents Saturday night, but we survived and really enjoyed a great weekend.
Happy Birthday Uncle Andy (7/28).

Have a good week and we'll keep you up to date,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, July 24, 2007 9:42 AM CDT


We have a big day at hand and some extra prayers today would help. We're going in to meet with Dr. Geyer, Marin's oncologist at Children's Hospital to discuss the treatment options and probably make a decision on what we'll do next. We've had an indication that the doctors here want to perform gamma knife radiation on the visible portion of the tumor but we're getting conflicting information from other doctors out there about how the ultimate affectiveness and the side affects of this proceedure and we're leaning away from it right now. We think there are some affective drug combinations that would be the better way to start fight this right now and the decision process is difficult.

Marin is not having a difficult time; she contiues to enjoy her summer and she's swimming strong. At the end of this week she's entered in a local club swim meet just to get more racing experience. And she was lifted up big time by a package she received in the mail yesterday. It was a beautiful patchwork quilt featuring the swim T-shirts of a dozen club swim teams from around Atlanta, including of course SwimAtlanta, her team at heart. It was a project organized by her friend Layne Brodie from the Dynamo Club, and came with a picture of Layne and another friend Sheila O'neil from Dynamo. The quilt was stitched together wonderfully by a mother and daughter from another club and it's clear lots of love and care went in to this project. Thank you Stingrays, Dynamo, Athens, CAD Dolphins, Chattahoochee Gold, Columbus Hurricanes, Carrolton Bluefins, Dekalb Aquatics, Greater Augusta, Troup County Sharks, and Gwinnett Aquatics. We'll include a picture of the quilt here shortly.

Have a great day and swim strong,

Marin & Nancy, Matt, Camlyn & Mike


Thursday, July 19, 2007 11:58 PM CDT


Thanks to all who've offered suggestions regarding further treatment possibilities. It's been a stressful week but we're managing it well as Marin remains upbeat. Her neuro oncologist met with a group of experts called the 'tumor board' on Wednesday and reported their opinion to us last night. There seems to be a consensus that the growth seen in her latest MRI is a problem and most likely tumor regrowth. To be certain, Marin will undergo a PET scan to better illuminate any cancerous growth and then we'll consult with Dr. Geyer next week when he gets the results. We've discussed a few possibilites already, including a possible gamma knife radiation treatment. Depending on the size of the growth and the urgency of treatment, this may be necessary. Beyond all of that, we're consulting with doctors at Duke, MD Anderson, the Block Clinic and the Burzindski Clinic, plus reading up on all the available clinical trials. We see some promise in a drug called Avastin in combination with another drug that's produced results for brain cancer patients. This course has been recommended by some of the doctors we've already spoken to but we'll wait for all the information before we proceed.

Marin doing great, again with a good attitude and focusing on her swimming. Camie's enjoying a week in New York with cousin Justin & his family and is going to see the "Today Show" Friday morning... look for a sign in the crowd that says "Hello Seattle" along with a Peach with long blonde hair.

We'll keep you posted on the latest developments. All your love and prayers are felt and we appreciate everyone sharing our burden with us.

Still swimming strong,

Marin & Nancy, Matt, Camie & Michael


Tuesday, July 17, 2007 0:43 AM CDT


Our weekend in Vancouver was terrific altogether with Marin qualifying for the US National team in the 50-backstroke. Her swims on Sunday were on par, she won her heat in the 100-freestyle (which she swims on her back) and her 100-backstroke was solid but neither of her times were better than her qualifying times. Marin was happy with her swims and she was thrilled to have friends (Molly & Deb) there to cheer her on.

After a great getaway weekend for the whole family, Monday was back to reality and this one was hard. Marin went in for her monthly MRI and the results were alarming. There are two areas of growth around the tumor cavity that weren't there a month ago, confirming our fears from a few weeks ago. So from here, we are now looking for the next treatment possibilities and will be focused on that for the next several days (suggestions and advice are welcomed). Through the tough news, Marin is steady and strong and completely positive as she always has been. We're a little shaken, but still very strong in our faith and hopeful for her future. She'll focus on swimming and getting better and we'll focus on the medical and other components to her healing. Thanks, as always for your spiritual and prayer support, we need a big push right now.

This news arrives just as Camie is enjoying her first big trip on her own. She flew by herself from Seattle to New York today (with a long delay in Chicago) and she'll be enjoying the next ten days with our cousins Justin & Stephanie and their family in the Big Apple. We're excited for Camie and don't want to alarm her while she's on this exctiting trip.

Please pray for Marin while enjoying every moment you can this summer.

Still swimming strong,

Marin & Nancy, Matt, Camlyn & Mike


Sunday, July 15, 2007 0:57 AM CDT


It's been a fantastic weekend here in Vancouver so far. We've been having a terrific time at the CanAm swim meet and a wonderful experience in this beautiful city. We've been quite busy and have been on the go from sun-up to sundown and this is the first opportunity we've had to update Marin's webpage.

So, here's the good news: on Friday, Marin swam the 50-backstroke and lopped 3.3 seconds off her own American record, clocking in at 50.46 seconds and with this time she QUALIFIED FOR THE U.S. NATIONAL TEAM!! What a thrill for all of us and Marin was so happy to reach one of her lifelong goals. Several members of the U.S. team congratulated her and she was so proud, almost as proud as Nancy and I. We can't tell you how amazing it is to see Marin thriving the way she is after all she's been through and everything she continues to deal with. After her triumphant timing in the preliminaries, we went back to the hotel, had a nice lunch and Marin took her afternoon nap before the finals in the evening. While she slept, the rest of us went for a nice walk with the Kaplan family (also Shadow Seals swimmers) in the local park near our hotel, then it was back to the pool for the evening session where Marin swam slightly slower in the finals. She qualified seventh (first in her classification) and swam a 50.90 in the evening. Lesson learned: you have to be on top of your game morning and night.

There are at least a dozen countries represented at this meet with the Chinese most impressive so far. They brought a lot of swimmers here and many of them are world-record holders. The U.S. team has some great swimmers here too, and we watched Jessica Long lower one of her own world records (the 200-Free) Friday night. The Australian swimmers are doing great too and the Mexican team has a strong group here as well.

Saturday, Marin swam the 50-fly and the 50-free, lowering her times in both events and making the finals in the 50-fly. She dropped 8-seconds in the fly to 58.76 and 2-seconds in the freestyle to 51.86. Again, her swim in the evening wasn't quite as good as she went 59.46 in the breast. Still, very impressive altogether.

All the excitement of the competition was great, but we're having just as good a time away from the pool. Marin's friend Molly Eberhardt and her mom Deb arrived last night and we hung out with them during the meet. After the evening session we all went out to a great Japanese restaurant for dinner, including the Kaplan family, and ate like kings. When the bill arrived, we learned that some anonimous diner picked up our tab without our knowing, someone who had been sitting near us and apparently enjoyed how much fun all the children were having and that person paid our bill and left. We have no idea who it was, but we are humbled once again by the generosity of a stranger. We appreciate the kindness and only look ahead to an opportunity to pay it forward. We are blessed with amazing friendships and enjoying every minute of it.

Sunday, Marin swims the 100-back and the 100-free. We'll keep you posted.

Much love,

Marin & Nancy, Matt, Camlyn, Michael, the Kaplans, Deb & Molly, Coach Kiko, the Chinese and TEAM USA!


Thursday, July 12, 2007 3:04 AM CDT


Big excitement on the eve of our trip to Vancouver as Marin is feeling the butterflies of competition welling up inside. We're looking forward to a great time this weekend as Marin is swimming in the CanAm disability meet at the University of British Columbia. While she's doing all the work, the rest of the family will enjoy the ride as we're long overdue for some getaway time. Once again, we're on the receiving end of some terrific generosity as coach Karen worked some of her charm on members at the BCC who were very happy to help sponsor Marin, and our friend Tom Glascow solicited the owner of a great local swim shop 'Sylvia's SwimWear' who contributed a cool racing suit and caps for the occasion. Marin was so thrilled with the new gear and we're all so thankful for the support.

We'll drive the 3-hours north to Vancouver early tomorrow in order to get acclimated and allow Marin some time for a workout in the pool. Then we'll try to chill (in the 100-degree heat) and enjoy some relaxing time before the competition gets underway Friday. We'll keep everyone updated the best we can throughout the weekend and the link to the meet can be found on the Swim Canada web site at:

http://www.swimming.ca/swimming/index_e.aspx?DetailID=2262

Have a reat weekend everyone, enjoy the great summer weather and thanks for your prayers and support.

Love,

Marin & Nancy, Matt, Camlyn & Mikey


Monday, July 9, 2007 10:13 AM CDT


Enjoying summertime has been the focus this week as the weather has been spectacular here in the northwest. Marin remains hard at work training for her big meet in Vancouver which begins Friday at the U. of British Columbia. She's looking great in the pool and working on diving off the blocks and appears ready to have a great meet, right down to the nerves that are now setting in.

With the rest of the family going in several directions over the weekend, Marin found herself with a full Saturday to be on her own. She was happy to take care of herself and enjoy a little independence. Instead, she had a lot of attention from her friend Naomi and her mom Elizabeth (Nancy's good friend) who took Marin under their wing for the day. After spending the morning hours laying out in the sunshine, the ladies went out for lunch to a place Marin loves. Later, they went to a movie and saw the new Robin Williams flick 'License to Wed'. Thumbs up from all three ladies (although the critics didn't give it much love) Marin really liked it and had a huge smile on her face when talking about it.

Sunday she had her final workout with coach Kiko before the meet this week. She's fired up and ready to go fast. We leave for Vancouver (about a 3-hour drive) on Thursday afternoon and we'll keep you posted on how it goes. We hope you all have a great week.

Summer sunnin',

Marin & Nancy, Matt, Camlyn & Michael


Thursday, July 5, 2007 1:38 AM CDT


Happy 4th Everyone,

It was an amazing holiday here in the northwest, where not a single cloud stained a clear blue sky from dawn to dusk. Marin began her day with a strong effort in the pool, working out with coach Karen for a couple hours in the morning and making a breakthrough on her starts. Up until now she had not been able (or willing) to take her starts off the starting block, rather standing to the side and diving in from the pool deck. But with caoch Karen's urging, Marin tried and tried, then eventually succeeded in standing on the block and making a strong dive from above. This should really help her in the upcoming CanAm meet in Vancouver and she'll be working on her dives for the next week and a half to gain her confidence. Once she was considered a truly great starter and streamliner. Now the problem is of course her balance on the block with only half her body working to stabalize her. Her right leg has a tendency to tremble uncontrollably, a condition called 'clonis' that is very difficult to deal with. Her right ankle as well has no stability so balancing in a starting position is more than a difficult chore. She did a courageous job today though and with a little more practice she'll be more confident. We can't wait to see how diving from the block might improve some of her times.

After the workout, it was all fun. We spent the day out on Lake Washington with our good friends and neighbors Rob & Tami and their boy Peyton who's Mike's age. Rob & his dad own a terrific 36-foot yacht that was more than roomy for about ten of us as we anchored off a park in Bellevue and fired up the BBQ for shishkebob's that Nancy prepared. It was a spectacular day on the water, and in the water for those of us who got wet. Then it was home close to sundown to enjoy the first ever city fireworks in our town of Sammamish. The whole town seemed to gather at the new city hall, we saw lots of friends and neighbors, and the fireworks show was absolutley first rate. Good times all around. A great Fourth of July here, and we hope you all had a good one too.

Here's to Independence,

Marin & Nancy, Matt, Camlyn & Michael


Sunday, July 1, 2007 7:08 PM CDT


Taking a little time to unwind, it's been a relaxing weekend with a purpose. Mom and Marin have the house to themselves for a couple days as Dad took Camie & Michael down to Florence, Oregon to visit their cousins at 'Camp Cavarno', the lake home of their cousin's grandparents Tony & Barb Cavarno, who've made their lakefront party space available to us whenever we've wanted to visit. For those that made the trip, the weekend is full of wild adventures and maintainance chores that makes for great bonding and terrific memories with their cousins.

At home, Mom and Marin are enjoying a little more peace without a five-year old to entertain. With some great sunshine Friday, it was a relaxing way to get the Independance Day weekend off to a good start but not at the expense of what had to be done. Working out in the pool and school work is the priority that's kept Marin & Mom at home this weekend, but the benefit of less people at home is almost a vacation in itself. We're looking forward to Marin's swim meet in Vancouver in two weeks so the focus on training is important. Plus, we can rent some movies WE want to watch (non-Disney, or family appropriate) and just be grown-up girls together.

We hope you're having as much fun as we are,

Marin & Mom, Matt, Camlyn, & Michael


Friday, June 29, 2007 0:56 AM CDT


With Summer now in full-swing, the routine has changed slightly but the mission remains the same; Marin is striving to get better in every aspect of her being. Her school lessons will continue through the summer with Ashley and other helpers while her rehabilitation in the areas of speech, occupational and physical therapy are running out at the end of this month. We've simply used all the allotted hours according to our current health insurance policy, so we're doing our best to land a job with benefits. It's a tough road, and we have faith that this will lead us through to prosperity, but at the same time it's very trying and stressful as we try to help Marin be all she can be. Nevertheless, there's no putting on the brakes as far as she's concerned. She'll continue to work on her speech, OT & PT without the official supervision, but she'll need more help from Mom & Dad and she'll have to push herself more that she normally does.

Thank God she has her swimming, which has been a great source of physical and mental stimulation for Marin. She's in the throes of training hard for the upcoming meet in Vancouver, now just two weeks away. She's very inspired to swim her best and she's doing everything from working out hard to eating right in order to make a great showing. A good meet for Marin here in Vancouver could help her make the US Paralympic team and perhaps earn a spot on the squad going to Beijing next summer. What a thrill that would be! Indeed, it would be a goal fulfilled and a dream come true. And she's not leaving it to chance... Marin's working very hard for this opportunity.

We're looking forward to seeing some of our cousins this weekend and thinking of all the other relatives and friends we miss, especially this time of year.

Enjoying the sunshine and memories,

Marin & Nancy, Matt, Camlyn & Michael


Wednesday, June 20, 2007 9:35 AM CDT


Tuesday was Marin's 17th birthday. What a wonderful time it is to reflect on the blessing we've experienced. Even as we struggle in other areas of our family life, above everything we know that her wellness is the ultimate gift and we are profoundly thankful that she is enjoying each and every day, with the great hope that there are many more ahead.

For the second year in a row, a crew from Bellevue High, spearheaded by Marin's friend Molly raided the front of our home and used sidewalk chalk to decorate the street out front in a big birthday wish for Marin. It was a touching scene as Marin was so happy to see these good people out to make her feel special.

Still swimming strong, Marin enjoyed a nice birthday lunch with Mom and friends at the Bellevue Club after her mid day work out. Later in the evening, she went to the movies with Molly and a few others and exercised her new status as a 17-year old to see 'Knocked-up'. The grown-up subject matter was a bit of a concern for us, but we've seen it and have to see it was a really funny movie. Marin enjoyed it and her night out with the girls (and without the 'rents) was good for her.

Thanks to all who've posted birthday wishes to Marin here. She is so touched to hear from so many old friends and new.

Have a wonderful day,

Marin & Nancy, Matt, Camlyn, & Michael


Sunday, June 17, 2007 11:32 PM CDT


It's been one terrific Father's Day here as we enjoyed a truly amazing gift from our community. Today we all attended a benefit soccer game organized to help Marin. Tom Glascow is a friend of Matt's from the broadcastin world who cooked up a plan to help our family when he heard we were in need. Tom arranged for the Seattle Sounders soccer club to play a charity game and when the word spread, lots of our good neighbors and friends were eager to get involved. With friends like Val & Susan & Nancy & Heidi and many others helping to sell tickets and line up as volunteers, the event went off this afternoon bigger and better than we could have imagined. At was very humbling to see hundreds of people filling the stands at a local high school to enjoy the Father's Day game and contribute to Marin's medical fund. Everyone had a great time, the weather held up nicely, lots of people bid on auction items like autographed footballs and baseballs from Seattle pro teams and including three hats that Marin knitted herself and the entire event was a big success. Our sincere gratitude goes out to Tom & the Sounders and everyone who volunteered and attended to make this one of the most memorable Father's Day ever.

We also send our best wishes out to Matt's father 'Grumpy'
who turned 75 today. Happy Birthday, Grumps!

Happy Father's Day to all the Dads out there,

Marin & Nancy, Matt, Camie & Michael


Thursday, June 14, 2007 9:32 AM CDT


We're a little concerned after Marin's latest MRI taken yesterday before her next round of chemotherapy. For the first time in several months we didn't see noticeable improvement and the doctors who read the scan did not list it as stable. There seemed to be some extra 'glow' to the areas identified as cancerous cells. This was alarming to us, yes, but not necessarily a terrible setback. The contrast of the MRI overall seemed a little brighter than the ones we compared it to and thus this could be a matter of photo quality, but we are concerned and we'll continue to watch this closeley every four weeks. This also means this will be the final round of the clinical trial chemo that she's undergone for the past 15 months. Because there was no improvement this month, Dr. Geyer has determined that whatever affect the chemo has had is already complete. He's already allowed a 3-month extension for Marin and the diminished returns means we will look at other options for treatment going forward. We'll be studying the clinical trials going on out there and figure out if there's something that would make sense to move on to. At this time we ask for extra prayer support to keep her wellness trend on the upswing and we'll be extra diligent with the holistic medicines and her diet. Thanks for the spiritual support.

On a brighter note, we learned that the KOMO News story featuring Marin last fall actually won the national Edward R. Murrow Award for feature reporting. Eric Johnson and his crew did a superb job on the piece and have been honored with the highest award in the broadcast news business. We're very proud and thrilled for Eric, who gave this story the care and effort it deserved. Once again, for an encore, here's a link to the story:

http://www.komoradio.com/news/local/4616302.html

Also on the bright side, our cousins Dan and Leanne welcomed a new baby boy to the Morrison clan. Congratulations!

Thanks for keeping us all in your prayers,

Marin & Nancy, Matt, Camlyn & Mikey


Monday, June 11, 2007 9:35 AM CDT


Reading all the entries from good friends, neighbors, co-workers and aunts, uncles & cousins always gives us a great lift and helps to get our week off to an energetic start. It's nice to hear Megan & Justin are expecting twin girls, sorry to hear Aunt Jeannie's been ill... we hope you feel better!

Marin's swimmer's ear is still bothering her and she was feeling it pretty bad over the weekend. She did go swimming with the Shadow Seals on Sunday because she wanted to get in a good workout before dealing with chemotherapy this week. She plugged up her ears with these big wax plugs, and we suppose they work fine but she still was in pain and gutted through her workout. She's looking really good in the pool. Her turns in particular have looked really good and you can see she's pushing herself & getting better each week. We'll be taking a few days off as she deals with her chemo this week, which maybe allows her ear to heal better anyway.

Next Sunday there will be a benefit soccer game at Issaquah High School with the Seattle Sounders playing a co-ed match to raise funds for Marin. We were so humbled when Matt's friend Tom Glascow approached us about organizing this, and then all our great neighbors pitched right in to begin selling tickets and getting the word out. Val Gallagher has been a driving force and she's already sparked a bunch of sales. We're looking forward to the event on Father's Day, which by the way is Grumpy's 75th birthday. HBD Grumps!

Swimming strong,

Marin & Nancy, Matt, Camlyn & Mike


Friday, June 8, 2007 10:15 AM CDT


To catch you up on this week, we've been busy but Marin was thrown off her routine Monday when she couldn't stand the pain any more from a bad case of swimmer's ear. OUCH! We took her to the doctor who gave her a prescription and the infection is getting better but we have to stay on top of it. The ear prevented Marin from swimming two days this week, but she's back in th epool now and training hard toward the Can-Am meet coming up next month.

After beautiful weather last week we endured several crummy overcast and rainy days this week, but Friday dawned with sunshine and a return to warmer temperatures. We're looking forward to a great weekend and we're also looking ahead another week to a coll event put together by some good people in our Community. Tom Glascow is a local sports broadcaster who organized a benefit soccer game featuring the Seattle Sounders playing a co-ed game with the proceeds going to Marin's funds. This is an extremely nice gesture and we're looking forward to this event which is coming up on Sunday June 17th, Father's Day, at Issaquah High School at 4 in the afternoon. If anyone is interested in this event for Father's Day, please contact us and we'll get you tickets.

Finally, we're heavy-hearted this week as Nancy attended the funeral service for a friend Thursday. We're remembering Lisa Jones and her family this week as Lisa lost her fight with cancer this week. We'd come to know her through the Knights and Dames of Malta and she went on the trip to Lourdes with Marin & Nancy last year. Lisa was a lovely young woman in her early thirties who was always so encouraging toward Marin as she had some of the same affects and hair loss from radiation as Marin did. We're saddened by her loss and will keep her in our hearts and prayers.

Living strong,

Marin & Nancy, Matt Camie, & Mikey


Sunday, June 3, 2007 11:34 PM CDT


We all enjoyed a really great weekend with the weather as good as it gets anywhere. The highlight was Saturday night's dance recital, as Camie performed with her hip-hop class. The performance overall was absolutely fabulous, with dozens of dances performed by the troup with near-professional excellence. Although Camie is in a beginners class for teens, they didn't an amazing job with difficult choreography and of course Camie stood out with her long legs and flowing blonde hair. She's really quite a good dancer and she wants to continue with the program. Marin really enjoyed seeing her little sis perform, and as I said, the entire evening was really well done.

Earlier Saturday, Dad took Camie & her friend Natalie and Mike to a kids fishing derby a little north of here. It was a true sportsman experience, getting up before the sun and gearing up for trout fishing on a lake. We shared the dock with other families taking part and had a nice three hours with our lines in the water. Camie was the only one in our party to catch anything; she hooked two decent sized trout, 1.1 lb and .6 lb. She let Mike have the little one to weigh in and they both received consolation prizes. It was amusing to witness Camie and her fish; she was so surprised by the first catch, and flustered with trying to get it in the bucket, that when she hooked the second one she exclaimed "Oh, NO...", prompting one of the parents near by to comment "that might be the first time I've ever heard someone say 'Oh no' when they actually caught a fish...!". Funny.

Sunday, we all enjoyed a day out at the Mariners game with Michael's t-ball team on Little League day. Good times and the Mariners beat the Rangers handily. Ironically, Mike's LL team is called the Rangers, so he was a little torn between which jersey to wear. He ended up going with his Mariners 'Ichiro' shirt, and we all had a nice time.

We have another big week ahead with lots on the to do list.
Have a great week everybody.

Marin & Nancy, Matt, Peach & Spidey


Wednesday, May 30, 2007 0:20 AM CDT


Although a little chilly, Monday was relatively nice and we thoroughly enjoyed the Memorial Day holiday with lots of happy neighbors. Our good friends Val & Rick hosted a BBQ at their home where the kids ran wild and the wine flowed freely. Marin was the center of attention after arriving fashionably late because she enjoyed a long afternoon nap. She had therapy with Jessie first thing in the morning then went to the pool with Dad and Mike to get her workout week off to a good start.

There was a little extra excitement in the morning for Nancy and her workout partner Miss Elizabeth. On their early morning bike ride, they came across a pile of bear poop on the trail. So for the remainder of the ride, Elizabeth was giving off hoots and whistles to scare off the bear if it was near. The scene was retold with a big laugh from Nancy.

Tuesday started with another strong workout scheduled in around therapy and school work. A day late, the really nice weather his today with sunshine and warm temperatures all day long, prompting Mar & Ashley to take their lessons outside, where they were lounging in their bikini's doing their 'school work'.

We're starting to get our first taste of the whole Olympic experiene as Marin is now on the list of athletes under the watchful eye of the US Anti-doping Agency. They'll be tracking her schedule and having her pee on command when they choose to test her. We had to fill out a form stating where she'll be for the next three months and she'll be at their whim whenever they want to test her. No, we haven't thought about a 'whizzinator', but we are trying to figure out if some of her chemo drugs might be a problem. We doubt it but we're looking in to it, and we'll find out.

Cami's volleyball and Mike's t-ball finish this week and there's a growing restlessness as the school year draws in to the final weeks. We're having fun and looking forward to a great summer.

Swimming strong,

Marin & Nancy, Matt, Peach & Spidey


Wednesday, May 30, 2007 0:20 AM CDT


Although a little chilly, Monday was relatively nice and we thoroughly enjoyed the Memorial Day holiday with lots of happy neighbors. Our good friends Val & Rick hosted a BBQ at their home where the kids ran wild and the wine flowed freely. Marin was the center of attention after arriving fashionably late because she enjoyed a long afternoon nap. She had therapy with Jessie first thing in the morning then went to the pool with Dad and Mike to get her workout week off to a good start.

There was a little extra excitement in the morning for Nancy and her workout partner Miss Elizabeth. On their early morning bike ride, they came across a pile of bear poop on the trail. So for the remainder of the ride, Elizabeth was giving off hoots and whistles to scare off the bear if it was near. The scene was retold with a big laugh from Nancy.

Tuesday started with another strong workout scheduled in around therapy and school work. A day late, the really nice weather his today with sunshine and warm temperatures all day long, prompting Mar & Ashley to take their lessons outside, where they were lounging in their bikini's doing their 'school work'.

We're starting to get our first taste of the whole Olympic experiene as Marin is now on the list of athletes under the watchful eye of the US Anti-doping Agency. They'll be tracking her schedule and having her pee on command when they choose to test her. We had to fill out a form stating where she'll be for the next three months and she'll be at their whim whenever they want to test her. No, we haven't thought about a 'whizzinator', but we are trying to figure out if some of her chemo drugs might be a problem. We doubt it but we're looking in to it, and we'll find out.

Cami's volleyball and Mike's t-ball finish this week and there's a growing restlessness as the school year draws in to the final weeks. We're having fun and looking forward to a great summer.

Swimming strong,

Marin & Nancy, Matt, Peach & Spidey


Sunday, May 27, 2007 11:37 PM CDT


Pleas forgive our lack of updates this week, we'll do better going forward. It's been a busy week for all of us and Marin especially. Between schoolwork, rehab and swimming she's been going full throttle. Her workouts in the pool are going really well and she's really inspired to be at her best when she swims in the Can Am meet in July.

We're enjoying the long holiday weekend with lots of family time together. We had planned to go camping, but we aborted that mission based on some weather factors (and the lack of a campsite reservation). Instead, we did a little 'suburban camping', taking the kids down to a little lake a couple miles from our house and went fishing all afternoon. What an adventure that was. We have a few poles and some basic equipment but we aren't exactly ready for the 'Bass Masters' just yet. Fortunately we met a nice family on the pier who gave us some valuable tips about what type of bait and rigging works best for this type of lake fishing, so we started getting in to it. Cami really was determined to catch a fish (we didn't, but we'll keep trying). Michael was determined to cast his line as many times as possible and he did that. Marin really enjoyed the process, althoug


Friday, May 18, 2007 12:53 AM CDT


When last we left you earlier this week marin was going in for her monthly MRI and chemo treatments. The result of the MRI was pretty amazing as we continue to see a significant shrinkage of the visible cancer cells. It really is astounding to see the improvement over the past several months in each of her scans. So we're thrilled but cautious in our optimism.

There's no doubt that many factors have helped Marin reach this point, not the least of which is the continued spiritual and emotional support of so many friends around the world. Thank you all for your prayers, advice, and well wishes. We also feel strongly that Marin's macrobiotic diet, along with holistic medicines and nutritional supplements have a great deal to do with her winning the fight against her brain cancer. Of course her own positive attitude and will to take on the challenge is the foundation for all of this and we're just so happy and proud that she's getting better.

We're looking at a very bright, beautiful day here. Marin is taking the third of her five chemo treatments today and may be finished with the clinical trial after this month. Her doctor is advising we give it a rest, something we didn't do three months ago and we're glad we didn't. We'll continue to look at the possible treatments that continue to develop while watching her scans closely to determine what, if any, course of action we should pursue next. This experience has taught us so many lessons, especially that it's never time to relax or give up on the fight. So many new possibilites are coming all the time, it should give any cancer patient hope that there are remedies on the way. Don't ever overlook the natural and holistic treatments that some people swear by (and others dismiss) but the work of so many researchers and practioners of modern medicine is really making wonderful breakthroughs all the time. Marin's living proof that the spirit combined with excellent care can combine to defeat even the worst diagnosis.

Looking ahead to a wonderful weekend, celebrating Cami's birthday (belated) and Marin's teacher Ashley's birthday today. Happy Birthday to a wonderful teacher and friend.

TGIF... enjoy!

Marin & Mom,
Matt, Peach, & Mike


Wednesday, May 16, 2007 2:20 PM CDT

Windy Wednesday greetings!

We got a hint of "normal" summer weather yesterday with the temperatures soaring into the 80's and a beautiful blue sky. It's amazing how everything seems fine when you have great weather. Actually, with Marin, Camlyn, and
Michael, everything is wonderful!

Today Marin and I are at the hospital and Marin is receiving a MRI right now. After that we have an appointment with Dr. Geyer and then her chemo. This is the fourth month that they have given Marin the O6BG on the basis of "compationate use." Dr. Geyer dosen't want us to continue it anymore. Perhaps it's time to stop. I am hesistant because she is doing so well, her counts are remaining positive, and she appears everyday to be getting better. She sure is returning to that "teanage" personality.

On Sunday Matt, Michael, and Camlyn went for round 2 of Spiderman III. Marin and I went to see the movie Waitress. I thought it was adorable. Marin liked it but thought there was too much "behind the back" stuff going on. Definately worth checking out.

After that we went home and had frozen pizza for mother's day. That actually is a treat in our home since we eat healthy, all fresh everyday. Marin has found an organic, soy cheese, no sugar pizza that she likes a lot. It's made by the company Amy's. The weather on Mother's day was cold so the movies was a perfect thing for the family to do.

On Monday the sun started coming out and heading to the pool was beautiful. You can see all the mountains in the background on a clear day here and it's quite spectacular. At the pool where Marin swims, they have ski-lights over the pool. On a clear, sunny day, the sun shines down onto the water and Marin feels as if she is swimming outside in the warm sun! I watch her take frequent stops in the sun part and soak up the rays.

Marin has become a lot more serious about her swimming in the last month. Coach Karen has increased her workouts with more yardage. She loves racing, having goals to set and reach, and being in the competitive limelight again. I am so happy for her that she has realized that competing is an option for her again and that she still can do extremely well!

Michael has become quite the swimmer as well. He goes to the pool everyday with Marin and I and we play around in the pool while Marin swims her laps. Every once in a while, he goes to the end of the pool. Jumps in and swims (quite fast I must add) to the opposite side. He's pretty good at freestyle and backstroke. He's now working on doing the butterfly. Perhaps he will follow in his sister's footsteps and become a great competitive swimmer as well.

Cami hasn't been in the pool for quite some time but seems happy with her tennis and volleyball. I truely feel blessed for having three wonderful children. They are so strong, confident, compationate towards others, and happy. All I can say is that I am one of the luckiest Mom's in the world. I find myself trying to be the best Mom I can be for I have been chosen to be the mom of these three wonderful people.

I am trying to increase Marin's calorie intake while sticking to her diet. We have added daily protein shakes and switched from Rice Dream to Soy Milk for the added calories and protein. I am also trying to get her to eat more peanut butter and nuts. Any more suggestions? Remember she doesn't eat any meat, dairy, or sugar.

Thanks for the continued prayers for our family.

Hanging out in the hospital,

Marin and Mom
Matt, Camlyn, and Michael say hi too!


Sunday, May 13, 2007 1:20 PM CDT


Happy Mother's Day to all the wonderful women out there who've always put their others first. The reward may be unto itself, but you all deserve a to be first in our lives more often than one day a year. Enjoy this special day and we're with you all in spirit, especially Gramma Sharon who celebrated a big birthday Saturday.

Of course Nancy has had an extraordinary burden over the past few years and she continues to carry this with her amazing energy and determination. Marin is thriving today because of her spirit and Nancy's relentless drive. That's not discounting all the wonderful support we've had from so many terrific people, but our Mom has been the engine that's carrying this miracle forward.

On this day, we feel a bond with all the mothers out there who have their own crosses to bear and who's children may be in crises. We've met so many good and strong people through the course who've suffered as much and more than we have with life circumstances that can't be avoided. We pray for the mothers who've lost a child and recognize their love still remains.

After church, it's on to the yard work Mom wants to complete then we'll all go to the movies later this afternoon. Enjoy your Mom today and try to make each day special for her throughout the entire year.

Happy Mother's Day,

Marin & Nancy, Matt, Camie & Mikey


Saturday, May 12, 2007 1:21 AM CDT


So, no sooner than we mentioned watching "American Idol" and pulling for Blake did we have an "American Encounter" right here in the northwest. Blake Lewis is from nearby Bothel, Washington and this is the week on 'Idol' when they send the finalists home to see their family & friends and the community rallies. Blake was in town Friday doing a bunch of radio guest spots and he had two public performances on his schedule. Of course Nancy piled the kids in the car and took them down to see Blake perform in his hometown. It was a scene! Thousands of people crammed in to the little town square area. It was like the first 20 rows at a 'Stones concert (you know what I'm talking about). Well the crowd was pretty intense but Marin and Camie and a couple of their pals were totally game. Among the 'Blaker Girls' in the crowd, Marin and Camie got really close. Camie snapped a few photos on her cell phone and Marin reached through the wall of muscled body guards to pat Blake on the back ('atta boy!) as he walked to the stage. Big excitement for the girls, but Mikey was having a tough time being really small in a really big crowd so Mom had to haul him out on her shoulders. They found a little breathing room out toward the street where before long, a big hummer limousine pulled up to the curb. Soon the police were sectioning off the area and suddenly Mom & Mike were hanging out by Blake's Limo with the cops holding everyone else back. Sure enough, he came strolling off the stage and right to where Mikey and Mom were 'watching' his car for him. Everyone had a great time and we'll be looking for glimpses of Camie's long blonde hair on TV next week.

All of this on top of an already full day that included a full swimming workout for Marin. We've all earned the weekend. Enjoy yours!

Marin & Nancy, Matt, Camlyn & Mike


Wednesday, May 9, 2007 11:50 PM CDT


This week has seen Marin on full throttle. Her routine is as full as ever and now that swimming is once again a matter of getting in to competitive shape, she's always on the go. Take today for example. Up early, she first worked with her school PT Anne for an hour, and then with her occupational therapist Sue she hit the kitchen for a little baking session. The result was a batch of delicious macrobiotic coconut cookies that Marin just loves. After scarfing a couple down, it was off to the pool for a workout. Admittedly a little tired already, Marin did work hard with coach Karen and her reward was a yummy salmon sandwich and a good nap. She was awakened by Ashley later in the afternoon and worked through her school lessons into the evening. After a good dinner of fish and 'American Idol' we were all relieved to see the Blake survived this week (it was close).

Goodnight all,

Marin & Nancy, Matt, Camie & Mikey.


Monday, May 7, 2007 8:06 AM CDT


We hope you all had a wonderful weekend knowing full well that few could top Marin's. Saturday was a big day that we'll never forget as she experienced a prom like no other. We wrote earlier about Marin being invited to the Starlight Starbright Foundation annual dance for teens who have illnesses or other medical conditions that prevent them from being involved in the mainstream school activities. The foundation organizes this event so that these youg people can enjoy a special night with a group of peers. And boy, this really was special. For starters, they offered a dress fitting where Marin and the others could go downtown to a shop and pick out a gown that was donated to the cause. Marin and Mom went in the afternoon and they picked out this beautiful strapless red dress with an open back tied together with laces. It was absolutley stunning (pictures to come) and Marin was very pleased. The foundation also offered hair and make-up services so we went to the event a couple hours early and Marin had her face and hair done by professionals who donated their time and worked on the girls at the hotel. The make-up was a little thick at first so Marin customized for herself and she asked the stylist to striaghten her hair and it looked smashing!! So feeling all beautiful, she went to the prom with her escort (Dad) and proceeded to have a wonderful time. We met lots of nice people and with a little coaxing, Marin was on the dance floor having a good time as everyone did all evening. She sat at a big table and made friends throughout the evening, and was very happy to see that one of her teammates on the Eastlake High swim team was there as a lead volunteer, indeed Leslie had organized the entire event as part of her senior class project. What a job she and all the volunteers did to make this an unforgettable night for so many young folks who all seemed to have a great time. It really was wonderful and we'll be sharing pictures with you soon.

Hope your weekend was wonderful too,

Marin & Nancy, Matt, Camie & Spidey III


Saturday, May 5, 2007 11:00 AM CDT


Sorry for the long lay-off, it's been an exhausting week. Marin has been working hard in therapy and in the swimming pool. She's definitely benefitting from the more rigorous workouts with coach Karen as she has increased her stamina significantly. The other day, she swam a fast 200 yards in practice and said she felt really good and strong. Up until recently, anything beyond 75 yards would wear on her but now she's getting in to good shape and she's definitely inspired about competing again.

Friday, we took a much needed break and Mom took Marin and Mike to see the new Spiderman III movie. Mikey was so excited when he woke up Friday morning that he just couldn't be denied. Dad and Camie couldn't make it for the matinee, so they'll get a make-up date. The reviews were strong although we're warned it's a very emotional film.

Camie came home Friday with another great report card; all A's, she's such a wonderful person. She celebrated last night by having a handful of friends over for lasagna and then all going out to the junior high dance (look out world).

Tonight Marin is going to a dance of her own organized by the Starlight Foundation, a group that puts on events for sick or disabled children and teenagers. This is going to be a fancy affair for all the young people that aren't able to go to their own school prom. They help Marin with a dress, hair and make-up and try to make everyone feel special. Dad will go along as her escort and we're looking forward to a good time.

We hope you all have a good weekend too,

Marin & Mom, Matt, Camlyn & Michael


Monday, April 30, 2007 8:54 AM CDT


What a great weekend as Marin made another big splash in her second disabled swim meet. This one was a smaller local event and it was held in a 25-yard pool compared to a 50-meter Olympic pool. Because the venue did not have any electronic timing pads, the times aren't official for national competition, but that doesn't mean Marin didn't swim fast! On Saturday she clocked a 44.16 seconds on the 50-yard backstroke, which would be an American record by about 17 seconds. She also looked great in the 50-free where her time of 44.97 was four seconds faster than the record, but again, not official. Her 1:39.06 in the 100-back was 29-seconds faster than the American record! I checked all these numbers against the world records and they're close, but she's a few seconds or more off on all of them. On Sunday it was more of the same as Marin's swim in the 200-back was more than a minute and a half better than the American standard for her class and her 100-free was 16-seconds faster than the national record. She also swam the 25-yard free in 21.05 seconds, which was very impressive although there's no record for this one.

Sunday her pal Molly showed up at the pool for support and it really gave Marin a lift. She tends to be nervous and reserved when she's competing but having Molly around I think really took the edge off for Marin. Coach Kiko and the officials and volunteers did a great job putting on a nice meet and it was very rewarding for Marin to have such a good weekend in the pool. We hope everyone had a good weekend too and swim strong in the week ahead.

Marin & Nancy, Matt, Camlyn & Mikey


Saturday, April 28, 2007 10:05 AM CDT


Back to a more typical routine here as Marin is works hard in balancing her rehab, school work and swim training. Nancy's been working super hard to get her to and from the pool while keeping her on schedule for the therapists and teacher (Ashley) who come to the house.

One of the daily commitments has been her use of the Saebo flex hand brace to work her right hand. The special brace uses springs and finger connections to allow her to open then close her hand (with great effort, though). She spends 45-minutes twice a day gripping foam rubber balls and moving them from one bucket to another. The springs pull back her fingers open when she relaxes her hand, then she gathers her strength to pick-up another ball. It's a heck of an effort on her part and we hope in time she'll see some benefit from the retraining of her hand and finger movements.

Swimming is going very well as she's stepped up her training and later today she'll be competing in a local disability meet. Marin's very excited about being back in the competitive mode as it certainly boosts her self esteem and gives her something to look forward to. We'll let you know how it goes. Until then, enjoy a great weekend.

Marin & family


Thursday, April 26, 2007 0:56 AM CDT


It's been quite a busy bee hive here over the past several days with Camie's birthday the big climax on Wenesday. "The Peach" is now officially a teenager, with number 13 arriving with her favorite dinner (filet mignon) and a nice chocolate cake baked by Mom (mmm, mmm good). It was a nice little celebration as Cmie has been going throuhg the statewide testing over the past week and she deserves a little reward. She'll have a more formal celebration a little later next month when she can have some friends over and hang out outside when the weather should be a little nicer.

Of course Marin and Mikey were front and center for Camie tonight, eventhough none of the treats fit with Marin's diet. But to her credit, she's able to enjoy the festivities with everyone else enjoying the goodies. We've made an adjustment to her daily diet recently as we've pumped-up the protein intake to try to get her a little more weight. She's working harder in the pool now with more of a full-fledged training regimen under coach Karen. After her workout today, karen took her to a hair stylist for a little make-over, so Marin was sporting a new 'do for Camie's birthday. It was really cute, with a bit of a trim and some hilites and Marin was very happy with it. Her pal Molly and her mom Deb met Marin and drove her home to help us out and it was such a nice thing to do. We've had a lot of nice things done for us recently and we truly appreciate all of them.

Appreciating friends and family,

Marin, Nancy, Matt, Mikey & especially the birthday girl!!


Monday, April 23, 2007 9:27 AM CDT


Sunshine on a Monday morning in the northwest, a nice way to start the week and reflect on a good weekend. It's the type of morning Michael will look out hte window and say, "It's a Happy Day!!".

For someone going through chemotherapy, Marin managed to do a lot of living this weekend as well. Saturday morning it was off to see Michael's T-ball game where he had a great time, hit the ball hard both times up, and made a nice play on a grounder to third. Then Mike went with Marin to the hospital for the fourth of five days of chemo treatment. That allowed Mom and Camie to get a little work done toward Camie's birthday coming up Wednesday. While Marin did her thing in the infusion chair, Mike & Dad enjoyed a new playground at Children'e Hospital that allows patients and visitors to get away from the circumstances for a short time. Mike tends to wear his 'heelie' sneakers everywhere, so he was happy to be zooming around the hospital for the couple hours we were there. Saturday night we all enjoyed a little fun with Camie having a few friends over to roast marshmallows and make 'smores'.

Sunday after church, we took Marin straight to the hospital to finish off her fifth and final day in this course of chemo, and she cruised right through. We celebrated with a nice lunch at the local Sushi place and she ate to her complete content. Then it was off to the swimming pool for her workout with coach Kiko and the Shadow Seals. Marin is starting to train more seriously after her success in Detroit. She'll be swimming in a local disability meet next weekend and she's fired up to be back in swing of competition.

Lots of therapy and workouts on the way this week. We hope you all have a good one.

Shining through,

Marin & Nancy, Matt, Peach + Spidey.


Friday, April 20, 2007 0:13 AM CDT


So far, so good this week with Marin's chemotherapy. For starters, her white blood cell count was very strong when she was tested Wednesday, higher than the counts had been in a year. Her MRI was very encouraging as well as the cancerous cells seem less prominent in her tumor area. Her doctor was very positive although he continues to officially list the tumor as 'stable', there is little doubt that we are seeing the cancerous area diminishing. All the prayer support is working, every bit as much as the medicine, diet, supplements and holistic treatments. We have a lot of hope.

On the swimming front, Marin was treated like a rock star after coming home from Detroit where she set a new American record. On Tuesday, her coach Karen and supporters and the Bellevue Club were thrilled at the news. Now she'll be stepping up the workouts as she tries to get in better competitieve shape and prepare for her next meet in Vancouver this July. Marin is very close to time standards that could place her on the US paralympic team and that's her next goal. We want to say thanks to all the well wishers who've written here and elsewhere to help Marin enjoy her success.

Three more days of chemo this week and then she'll be back to the pool on a more regular basis. Have a good weekend everyone.

Marin & Matt, Nancy, Camlyn & Michael


Wednesday, April 18, 2007 5:28 AM CDT


Hi again everybody,

After a long day of travel Monday we're back home in the northwest and reflecting on the weekend before facing a big week ahead. The trip to Michigan for the swim meet was fantastic with Marin performing so well, setting an American record and enjoying the company of our cousins who turned out in force to cheer her on. That made her feel extra special. Marin's performance was written up in
Swimming World Magazine and you can check it out here:

http://www.swimmingworldmagazine.com/lane9/news/14545.asp

In a back-to-reality check, we're going in for Marin's monthly MRI today and to begin her next round of chemotherapy so say an extra little prayer for good results. Despite the continuing struggle, it's important to realize our good fortune as others are suffering.

Please say a big prayer for the Samaha family, one of our cousins by marriage Gary Samaha lost his cousin Reema Samaha in the awful shootings at Virginia Tech on Monday. Our hearts and our prayers go out to all the families of the victims. Reema was just 19-years old. Please reflect on her life and her spirit.

http://www.usatoday.com/news/nation/2007-04-17-vt-victims-samaha_N.htm

God Bless You,

Marin & family


Sunday, April 15, 2007 9:08 PM CDT


A great weekend in Michigan wrapped up Sunday with the conclusion of the GTAC Disability Open and Marin had another good day. No, she didn't match her American Record breaking performance from Saturday, but she did compete very well and we all realized Marin is 'back in the game'. Today Marin was entered in three events beginning with the 200m-IM, and believe me she was apprehensive. She hasn't been swimming much distance in a long time and that along with the fact that she doesn't have a lot of confidence in her breaststroke created a lot of anxiety for Marin. As it was, she swam quite well in her first event of the day, falling behind at the start, recovering well in the fly, making up a lot of ground in the backstroke, then falling back in the breast and finishing with a lot of heart in the free. She finished in just under 5-minutes at 4:59.66, disappointing for Marin but among the top-10 times in the world this year for her classification. It's also the best time of any US swimmer in her class this year. Way to go Marin

Later she swam the 100m-freestyle, with a twist. Like she did in the 50-free, she flipped over and did the backstroke during the free event because it was more efficient for her. Marin rolled in with a time of just under 2-minutes at 1:59.73. I thought she went out slow and advised her of that so when she swam in the finals this evening she started out faster and, again doing the backstroke as free, Marin shaved 7-second off her time this morning, clocking in at 1:53.62 which is the best time in the US this year and among the top 15 in the world rankings.

Her 50m-fly didn't go very well as Marin swallowed a big gulp of water after surfacing and ended up DQ'ing. The misfortune continued in the evening finals when she DQ'd in the 200m-IM for the same reason, a big gulp in the butterfly derailed her but she finished strong as noted earlier in the 100 free.

So to recap the weekend, Marin had a terrific meet overall at the GTAC Disability Open, setting the American record in her class in the S-5 50m-backstroke on Saturday and qualified in four events for the big international Can-Am meet this July in Vancouver, BC. She was introduced to the world of paralympic competition where the athletes are extraordinary in their ability despite severe handicaps. Among the friends Marin made, and earned the respect of, this weekend were several members of the US Paralympic team, including Jessica Long from Baltimore who just last Wednesday Night in New York was honored with the Sullivan Award as the nation's best amateur athlete. She is a very nice 15-year old girl with amazing swimming abilities and acomplishments and it was a pleasure to swim with her at this meet. We also want to express what an honor it was to reperesnt the Seattle Shadow Seals under coach Kiko along with teammates Ira and LenFen Kaplan, Justin, and Jake who all made the trip to Michigan from the Northwest to represent at the Disabilty Open. Thanks for a great weekend.

Bring on next week,

American Record Holder Marin
& Dad, Mom cami & Mikey


Saturday, April 14, 2007 9:52 PM CDT


What a terrific day it's been for Marin and our entire clan. It was amazing this morning to have a big representation of aunts, uncles, and cousins on hand to see Marin set the AMERICAN RECORD in the S-5 disabled 50-meter backstroke at the GTAC Disabled Open. Her time of 53.72 seconds shaved 6-second off the old record that had stood since the 1996 Olympics in Atlanta. It also placed her among the top-10 in the current WORLD rankings. A special feat and Marin was so very proud. Later, she swam the 50-meter freestyle and performed terrifically with the best time among US swimmers this year and among the top 30 in the world rankings. Those were the hilites of her first international meet and that was only the preliminary heats.

Later this evening she returned to the pool at Oakland University outside Detroit and swam another round of good heats. In the finals of the 50-back we were hoping for a slightly better time to qualify her for the US elite paralympic team but she came up a little shy, clocking in at 54.02, slightly slower than this morning. No worries, she'll get another shot at making the standard this July in the Can-Am meet in Vancouver. Then in the 50-free, she employed a little astute strategy in the 50-freestyle (thanks to a suggestion from coach Kiko) and lopped 5-seconds off her time. Marin dove in as usual from the side of the pool, but turned over and used her superior backstroke as her "freestyle" and placed first in her heat, much to the surprise of a 2004 US Olympic medalist who wasn't expecting this kid to shave 5-seconds off her time from morning to evening. Marin's time in this event is now among the top-20 in the world this year for S-5 classified swimmers. Pretty cool.

Between swim sessions Saturday we had a great time visiting with lots of relatives at our Aunt Faith's house. Cousins Jim & Theresa McIntyre & family, Ev & Lori with Jackie, Craig & Ellen with Sarah, Pat with his children Katherine & Patrick, Kenny was there, Joe & MaryLou Burns, Mary and Jim Hunt, and of course Aunt Dee & Aunt Nell were the 'coup de gras'. Marin was thrilled to see everyone and she was so proud to swim so well with everyone around watching.

On the home-front, Mom and Camie supported Michael in his first T-ball game. The left-handed hitting multi-purpose player hit the ball hard and had a lot of fun according to eye witness accounts. When asked how it went, the 'lil slugger commented "I got a goody-bag!". What a great day.

Now it's time for sleep because we have three more events tomorrow. The 200 IM first, followed by the 100 -free and 50-fly. We'll keep you posted.

Enjoy your Sunday,

American Record Holder Marin
& Dad in Michigan


Saturday, April 14, 2007 3:12 PM CDT


Well here's some big excitement from Michigan. The GTAC Disability Open is undreway this weekend from Oakland University outside Detroit. On Friday, Marin was classified as an S-5 disabled swimmer (on a scale of 1-15, with S-1 the most severely disabled and 15 = deaf swimmers but able bodied). So the classifiation was pleasing to her coach Kiko here who was quite excited about where Marin graded out. Today we learned why Kiko was so excited. In this morning's qualifying heats, Marin was specatcular, setting a new American Record in the S-5 50-meter backstroke!! She lopped 6 seconds off the old record with her time of 53.72 seconds. This time would actually earn her the American record in the S-6 category as well. Her time was among the top-10 S-5 in the WORLD this year. And Kiko is already talking about bigger and better international meets. She also did very well in the 50-freestyle this morning and we're heading back for the finals this afternoon. We'll update you later this evening.

Have a great Saturday,

American Record Holder Marin
& Dad


Friday, April 13, 2007 9:16 AM CDT


After a day of travel Thursday, we arrived in Detroit (through Cincinnati) where our cousins Craig and Pat Livingston met us at the Airport. It was great to see the guys for the first time in several years and then to see Aunt Faith was terrific. She's looking great after recovering from a stroke a couple years ago and she's a source of good moral support for Marin as both suffer from aphasia, which is a difficulty verbalizing their thoughts. It's rather cute to see them together.

Today it's on to the pool at Oakland University where Marin will be evaluated for her official classification as a disabled swimmer. She'll get used to the pool, do a little work out, and get ready for the competition, which for her begins tomorrow. We're very excited and we want to take this opportunity to everyone who helpd make this happen. From coach Karen and coach Klaus who've been so supportive at the BAC, to coach Kiko who encouraged us to get Marin back in to competition, to the doctors, nurses and therapists who've helped her regain her health to this point and of course to Uncle Andy, Uncle Charlie, Aunt Dee, Aunt Nell, and all the other kin folk who pitched in to make this trip possible, we're very grateful.

One other piece of family business that apparently needs to be addressed. When I gave a happy birthday nod to Aunt Cake yesterday, I mentioned she was 'something like 62 now'... well, Kathleen can take a joke, but Gramma Sharon can't. Granny wanted to point out that SHE's still in her 60's (for now) and she didn't want people thinking she had her third child when she was 7 years old. OK? We good...?

We'll keep you posted on the swimming and good luck to Mikey in his first t-ball game this weekend. Have a good one everybody.

Marin & Dad,
Nancy, Camlyn, & Mike


Thursday, April 12, 2007 7:56 AM CDT


Sorry again for the spotty entries this week. It's been hectic and we vow to do better going forward.

Well Marin the jet-setter is at it again. Coming off the spring break trip to sunny Southern California, she's hopping a plane with Dad today to take off for chilly Detroit Michigan. It's the big weekendf where she's getting back to competition in the GTAC Disability Open. The meet is hosted by the Greater Toledo Athletic Club swim team and you can follow the action through their web site at:

http://www.gtacswim.com/

Marin is quite excited about this new level of competition and you can tell she's ready because she's nervous the way she always was going in to a big meet. It's really wonderful to see her living this part of her life so well again.

At the same time we're very excited about seeing our relatives in the Detroit area for the first time in quite a while. We'll be staying with Aunt Faith and we expect to see lots of our aunts, uncles and cousins on Matt's side of the family (he has over 40 first cousins). This is going to be a fun weekend and we're grateful to Uncle Andy and everyone who pitched in a lot or a little to make it happen for us. It's huge.

And Marin is even feeling a little extra special about herself this week as she realized not long ago that the hair on top of her head has grown long enough now that she can brush it over to the side and completely cover the bald area that remains from her radiation therapy a year and a half ago. So although she looks adorable in hats, she doesn't feel like she HAS to wear one everywhere now. It's nice for her.

We wanted to extend Happy Birthday wishes to Matt's sister Aunt Cake on Wednesday. She turned something like 62 I thnk.

Swimmin' fast,

Marin & family


Sunday, April 8, 2007 9:41 AM CDT


Happy Easter everyone! He is risen!

Back home in the northwest, the trip to California was good for everybody and Marin is sporting a nice tan on her lege that's already beginning to peel behind her knees. She really loves the sun! Now it's back to reality and even through a little rain, it's a wonderful day to reflect.

Running around with all the cousins this week was really special, particularly for Michael who is among a posse of little dudes that are on their way up to take over the family. Landon is 7, then there's Toby, Michael, Timmy and Caleb, enough for the starting five on the LA Lakers in 2027. We had a very nice visit with Grandpa Dave during the week, something the kids always enjoy and he does too. Gramma Shirley hung in well during a hectic week as she enjoyed being with the grandkids most of the week, then traveled to Michigan with Uncle Ron for the services for our cousin Donald who passed away last weekend. Please say prayer in his memory and for his lovely wife Ellen who misses him so.

This week Marin and Dad will be traveling to Michigan to participate in an international disabled athletes swim meet. Marin is so excited to compete again and to visit with a batch of aunts, uncles, & cousins she doesn't get to see enough of. She'll get a couple of good workouts in over the next few days, and then let 'er rip! We are so grateful to Uncle Andy and the entire clan for digging in to make this happen for us. We'll be staying with Aunt Faith in Rochester and look forward to seeing anyone wh can swing by during the weekend.

In the meantime, enjoy a wonderful Easter Sunday with your loved ones.

Marin & Nancy,
Matt, Camlyn & Mikey


Friday, April 6, 2007 0:00 AM CDT


It's been a lot of fun rolling around San Diego for the past few days. In addition to thoroughly doing Seaworld over two days, we had a great time just enjoying the sights of this beautiful city. We took a walk down by the waterfront boardwalk and enjoyed the great exhibits at the art museum, the beach of course and all the sunshine that goes with it.

The last two days at Seaworld was a lot of fun as Marin and all her little cousins had such a good time enjoying each others company. Nancy's great friend Sherry joined the entourage today at it was wonderful to have her along for the ride. Marin has been truly great in how well she's been able to get around mostly on her own, and her energy has been terrific this week. The adrenaline rush of always being on the go and keeping up with the cousins is stronger than anything Starbucks can whip up.

Have a blessed Good Friday,

Marin & family

here's the link to the Seattle Times feature article from the weekend:

http://archives.seattletimes.nwsource.com/cgi-bin/texis.cgi/web/vortex/display?slug=marin31e&date=20070331&query=marin


Thursday, April 5, 2007 1:11 PM CDT


Spring break continues to be a fun in the sun adventure as Marin and the crew have been enjoying the sights of San Diego over the past few days. Everyday is beach day, so there's been lots of time down in the sand and sun. The entourage is a big one to be getting around, especially with the age split between gramma and the little ones tagging along, Michael and his cousins Timmy, Landon, Toby and Caleb. It's quite a crew of up & coming young men in this part of the clan. Of course Gramma Shirley may not have the stamina of a 5-year old anymore, but she's hanging in strong and really seems to be enjoying the grandkids.

Tuesday was hilited be a trip to Sea World and it was so nice, we did it twice with a return visit the next day. Shamu & company were on their game and everyone really enjoyed the park and all the shows. Today we'll be spending time with the Christies down in Carlsbad and we're looking forward to more beach time!

Still soaking the sun,

Marin & family

here's the link to the Seattle Times feature article from the weekend:

http://archives.seattletimes.nwsource.com/cgi-bin/texis.cgi/web/vortex/display?slug=marin31e&date=20070331&query=marin


Monday, April 2, 2007 11:41 PM CDT


Marin on location in SoCal continues to enjoy the sun during spring break. Spending time with her cousins is a lot of fun for her and today we also visited with our good friends and former next-door neighbors from Washington who've moved to Orange County. Kari was so helpful and supportive when we first moved to the northwest and we've missed her family terrible since they moved last summer. Their son Tanner is Michael's age and his first friend in the new neighborhood. They've been inseperable since they got together this morning and Mikey might spend the night with his little pal. It's really cute to see them together again.

Camie's having a fun time too, as her good pal Jen met her in California for the week, so it's a reunion of old friends this week on spring break. Marin had a chance to get in a pool and workout today which was really good for her. Then it was down to the beach for as much sand and sun as they can scoop up for the week. All good fun, but at the same time it's a sad day for all of us.

Our dear cousin Donald Eland passed away last night after his fight with cancer. Don is Gramma Shirley's first cousin and they were as close as a brother and sister. Over the years he has been a wonderful friend and a great 'uncle' to all our children. Donald had a zest for life, a baseball star in his younger days and a terrific golfer, tennis player and all around athlete for the duration of his life. He was a retired college professor who really enjoyed his vocation. We all really loved Donald and we'll miss him. Our hearts for out to Ellen and the rest of his family.

In loving memory,

Marin & family

here's the link to the Seattle Times feature article from the weekend:

http://archives.seattletimes.nwsource.com/cgi-bin/texis.cgi/web/vortex/display?slug=marin31e&date=20070331&query=marin


Sunday, April 1, 2007 4:26 PM CDT


As Marin enjoys the sand and sun in Southern California this week, her notoriety continues to grow in the Northwest. On Saturday, the Seattle Times ran a front-page feature article about Marin, her challenges, and how she continues to inspire us with her attitude and perseverence. The article was headlined "The Unsinkable Marin Morrison". Reporter Sonja Krishnan did a wonderful job and the photos were excellent. Lots of well wishers have written Marin in her guestbook and that's really nice. Here's the link to the story in the Times:

http://archives.seattletimes.nwsource.com/cgi-bin/texis.cgi/web/vortex/display?slug=marin31e&date=20070331&query=marin

Marin, Mom, Camie & Michael are visiting Gramma & the cousins this week in California but they'll be home in time for Easter. Have a good Palm Sunday.

Marin & family


Thursday, March 29, 2007 10:59 AM CDT


We learned first-hand (no pun intended) just how much work it's going to be to get Marin's right hand working with the Saebo flex technology we told you about last time. On day two, without the OT Beth here to guide us, the operation did not go smoothly. In the early session, we were able to get the flex on in about 12-15 minutes, but it was difficult and it wore Marin out so she was unable to work the ball transfer exercise for very long. In the late session, it was very frustrating trying get the flex on as Marin was tired at the end of the day so her hand was virtually locked up. We never got the flex to fit right so we're making another try today and we'll have Beth here for better guidance.

We heard some very cool news this morning as the regional Edward R. Murrow award winners were announced, and indeed our friend Eric Johnson won the Northwest honor for feature reporting with his great piece on Marin. We were thrilled for Eric and for Marin as well. In the TV news biz, this is a very big deal and we're very proud of the job Eric did on Marin's story. So by popular demand, we're including this link to the KOMO news story once again. Enjoy!

http://www.komotv.com/news/4616302.html

Have a great Thursday,

Marin & family


Wednesday, March 28, 2007 2:04 AM CDT


You know, something that makes you feel really good is when you're in a pinch and people come running to help. The support we've felt for Marin this week has been amazing. Family, friends and neighbors from near and far have not been shy about wanting to help, and the moral, logistical and financial support has been humbling. We thank you all for the outpouring and Marin is thrilled to be able to swim in her first big meet in two years. Today at swim practice she was telling anyone who would listen that she was getting ready for a big meet, she was so proud, always had a smile on her face, but was quick to say how nervous she was about competing again. One coach expressed concern, as if Marin was going through too much anxiety, but the fact is that's the way Marin always felt before big events. It's a great sign of her mind-set and it's really fun to see her getting jacked-up to swim again.

Later in the afternoon Marin had a spectacular OT session with her therapist Beth. She delivered the Saebo Flex hand brace that we ordered recently and fitted Marin with this amazing piece of technology. The program uses this innovative brace with finger fittings and a system of springs and chains that allow her to actually grip a ball (grapefruit sized) and then release it as her fingers are trained to return to an outstretched position. Marin's exercise routine will consist of two one hour sessions per day when she's required to pick-up and deposit the balls continuously for the 60 minutes. Today, on her first day of use, she was ablt to put together one stretch where she gripped and released 30 balls in a row without a 'drop'. This was after spending about 45-minutes working with Beth just to figure out the fitting and how to operate the brace. The program retrains the muscles in the arm, hand and fingers over time so that eventually she'll get more motion out of the limb. It's pretty amazing to see, and even more amazing that Marin is so inspired to get to work on the tedious exercise, but she's already seeing the value.

More tomorrow,

Marin & Nancy,
Matt, Camlyn & Spidey





Monday, March 26, 2007 0:21 AM CDT


Among the highlites Sunday, Marin mentioned how much she enjoyed attending church today. Hanging out chatting with people afterward was a really fun for her especially with so much positive feedback from people she knows and others she doesn't know as well. People commenting on how well she looks certainly make her feel good, and lots of folks were congratulating Marin on the Sammi award she won last week. More than anything, just being out to socialize for the morning was really good for her. The people at church have gone out of their way to help us and we really feel the love.

Later in the day, the sun broke through just as Marin was getting ready for her swim practice with the Shadow Seals club. This is the para-athlete group that's getting ready for a couple of up-coming meets. There's a chance she'll be going to Michigan for an international meet next month and she's excited. At the same time, when the thought of getting back to very real competition hit her, she admitted that now she's getting very nervous. Hey, just like old times, and Marin has always done well under pressure.

We're working hard at making it work and we have a busy week ahead. Here's to getting it all going again. Have a good Monday.

Springtime, anyone?

Marin & family


Thursday, March 22, 2007 4:10 PM CDT


Sorry for the infrequent updates this week, we'll be doing better going forward. It's been an eventful week as well as a stressful one so we're just getting caught up a little.

Marin has been going strong, starting the week by finishing off her final two days of chemotherapy for the month. Once again, she amazed us with her resolve and positive attitude through the five days. Her MRI again looked very encouraging and she continues to show improvement in her therapies. Without missing a beat, she was back in the water the next day and today she was swimming again. She really wants to participate in the para-athlete swim meet next month in Michigan, and we're trying to figure out how to swing it.

Along the way, Marin is really showing impressive movement in her right shoulder as she does her physical rehab with a purpose. Some of her exercises are really helping and we can see improvement all the time. Imagaine simply lifting your arm to your shoulder, but it's a big victory for Marin. She's also doing very well in her speech, with the short-term goal of going an entire day speaking only in complete sentences. Long-term, it's to do that everyday. She's trying really hard and it's cute to see her working at it.

Over the past few weeks a reporter for the Seattle Times has been working on a story about Marin and yesterday the staff photographer came over to snap pictures. With Ashley working with Marin and Naomi visiting, everyone enjoyed the afternoon with the very nice photographer John going about his business. We're looking forward to the finished product and we'll let you all know when the story is printed.

In the meantime, we're enjoying watching 'American Idol' and Mikey's looking forward to his first T-ball game on Saturday. He was thrilled when he got his team jersey yesterday and was issued number 1!! Swell...

Still swingin',

Marin & family


Sunday, March 18, 2007 10:37 PM CDT

Well it certainly has been an amazing weekend. There's no better inspiration than the little ones living in our house, and of course Marin's example is as good as it gets.

How good is that? Saturday night we experienced one of those once in a lifetime evenings that we'll always cherish. We were conflicted over going to two big events we'd been invited to. The Make-A-Wish foundation invited us to the annual fundraiser gala as a featured wish family, and our local community Sammamish held it's annual Sammi Awards presentations featured Marin as a nominee for the Courage Award. It was a difficult choice to make but we felt we needed to attend the Make-A-Wish event and we had a wonderful time. We stayed in a nice downtown hotel where the gala and auction were held in the grand ballroom. It was a very fancy dress-up affair, and we were all made to feel very special. After showing a presentation about Marin on the big screens, including the KOMO-4 piece by Eric Johnson, our family was introduced on stage to a standing ovation! It was absolutely amazing and emotionally overwhelming. We were asked by the host about our Make-A-Wish experience, and we each had a chance to say a little something about what the foundation has meant to us. Then the host sprung a surprise on us, mentioning that we had foregone the Sammi Awards ceremony to help with the fundraiser and it was at that point on stage that we learned, along with everyone at the gala, that Marin indeed had won the 2007 Sammi Courage Award!! We were stunned and amazed and it's a moment we'll always remember. As we left the stage, Mike put his exclaimation on the moment be wheeling off in his 'heelies' (skates on sneakers). It was wonderful.

Back in Sammamish, our good friend and neighbor Yvette, who's also Marin's school counselor, had presented Marin as the nominee for the courage award and in a taped set-up, she told Marin's story beautifully. We were actually rooting for another friend of ours, Lisa Files, who was also nominated for the courage award and we would have been very satisfied to see her win. She's overcome her own battle with cancer and does so much for others. She is the one who started the Angel Tree for Marin around the holidays, and she also sent a bouqet of flowers to Marin at the Make-A-Wish event. As it happened, Marin was announced as the courage award winner, and her dear teacher Ashley went to the stage to accept the award for Marin. Ashley said she was surprisingly really nervous, bit all the reports are that she did a terrific job standing in for Marin just as we knew she would. Wow, it's hard to digest all that's happened in the last 48-hours, but Marin summed it it perfectly with her beautiful smile and a nod of her head when I asked her if she had a great time. "Yesss..." she said.

It's back to reality Monday, but it sure was nice to float around on cloud 9 for the weekend.

Smiles,

Marin & family


Friday, March 16, 2007 1:27 PM CDT


Good Friday. This is Nancy writing on Marin's behalf. I actually haven't been writing in a long time so Matt's doing it. I guess the emotional side of me has been taking over and it's been very difficult for me. Matt doesn't feel everyone of you that reads this is interested in our issues, etc. but only those of Marin. I beg to differ, especially when they affect Marin.

Firstly, Marin does continue to do great. Her attitude is still shinning strong. When I took Marin to swim with the para-atheletes on Sunday she did have a break down. She wants soooo badly to race again in the pool. It was very coincidental that we were going to swim that day with the person who can help that happen for Marin. Kiko is the coach who coached the para-olympic team in Greese. She has wonderful insite, info, and knowledge on this whole arena of competition and feels very strongly that Marin would do very well competing again in the para-athlete division. I know once I get Marin to one of these meets, she will feel "whole" again. Part of what made Marin Marin, was her competition. She loved the thrill of it. Perhaps that was why she was a sprinter. When she hit the water, she immediately gave it her all and continued to until she pooped out. When she swam at the high school state meet I could see the joy she experienced from that all over again. Her comment was,"I want to do that again!" Anyway, this brings us to our on-going trauma.

We're having financial stress with Matt lookng for a new job. I really can't go out and get work right now. I am taking care of Marin, trying to manage everything else, and have Michael at home with me all the time. He will start kindergarden in September. We still have all the continued therapy, suppliments, medicine, etc. that I can't stop doing. It's amazing right when Marin wants to start competing this happens. In order for her to compete, the meets are all over the country, not just in Seattle. When there are so few people in her situation, they have to travel to compete against eachother. There is a meet in April that the judges that classify Marin are going to be there, and it's in Michigan. She really wants to go.

Now, to try to figure out some solutions. I first thought for the swimming, maybe there are companies or organizations out there that would sponsor Marin in her swimming competitions. I don't know that much about it but if anyone knows, please pass the info onto me and also perhaps to that company, etc.

Secondly, as far as her therapies, suppliments, etc., there has to be some type of organizations that help out with this type of thing also. Perhaps the Shriners, Easter Seals, etc. If anyone knows or has any info on any organization out there regarding this as well, please let me know.

Remarkably, I think all three of our kids are doing great. I have been trying to sheild them from all of this although it's been rough. I must admit that though taking care of them, the neglect on myself has been huge. I now have a stomach ulcer, no suprise! Once again, I keep thinking how much can a family take. I guess God has chosen us to be the test.

Please know that through all the chaos, I feel thankful. I look at each and everything as a blessing to better ourselves as a family and our friends and extended family as a community. Please pray for these various things I have requested above as well as for our peace, strength, and most importantly, Marin's continued road to health! Every second of every day I am so thankful that I still have her to spend time with. She grows more beautiful each and everyday and her joyful spirit is an inspiration to everyone.

Medically, Marin is scheduled for an MRI today. After the MRI, and if her counts are o.k., we will start chemo this afternoon. We are hoping we can start for the first week in April myself and the kids are going down to So. California to be with my mom and siblings.

Tomorrow is another big day with both the Sammi Awards and the Make-a-Wish annual auction and gala. We have chosen to attend the Auction since Marin is the featured person in their annual report, they have done extensive interviews with her, are running the Komo 4 story, and it's a fundraiser. The Make-a-Wish foundation was so awesome to our family, hopefully Marin's presense at the event this evening will help other children's big wishes come true. Marin's teacher, Ashley is going to the Sammi Awards on Marin's behalf and has prepared a little speech that her and Marin wrote in the event that Marin wins the Courage Award.

Thanks again to all of you for the support, love, and understanding. Thanks for following along side us through all our turmoil these last few years.

Swim Marin Strong!!!

Big hugs,
Nancy and Marin
Matt, Camie, and Michael


Friday, March 16, 2007 1:27 PM CDT

Good Friday. This is Nancy writing on Marin's behalf. I actually haven't been writing in a long time so Matt's doing it. I guess the emotional side of me has been taking over and it's been very difficult for me. Matt doesn't feel everyone of you that reads this is interested in our issues, etc. but only those of Marin. I beg to differ, especially when they affect Marin.

Firstly, Marin does continue to do great. Her attitude is still shinning strong. When I took Marin to swim with the para-atheletes on Sunday she did have a break down. She wants soooo badly to race again in the pool. It was very coincidental that we were going to swim that day with the person who can help that happen for Marin. Kiko is the coach who coached the para-olympic team in Greese. She has wonderful insite, info, and knowledge on this whole arena of competition and feels very strongly that Marin would do very well competing again in the para-athlete division. I know once I get Marin to one of these meets, she will feel "whole" again. Part of what made Marin Marin, was her competition. She loved the thrill of it. Perhaps that was why she was a sprinter. When she hit the water, she immediately gave it her all and continued to until she pooped out. When she swam at the high school state meet I could see the joy she experienced from that all over again. Her comment was,"I want to do that again!" Anyway, this brings us to our on-going trauma.

We're having financial stress with Matt lookng for a new job. I really can't go out and get work right now. I am taking care of Marin, trying to manage everything else, and have Michael at home with me all the time. He will start kindergarden in September. We still have all the continued therapy, suppliments, medicine, etc. that I can't stop doing. It's amazing right when Marin wants to start competing this happens. In order for her to compete, the meets are all over the country, not just in Seattle. When there are so few people in her situation, they have to travel to compete against eachother. There is a meet in April that the judges that classify Marin are going to be there, and it's in Michigan. She really wants to go.

Now, to try to figure out some solutions. I first thought for the swimming, maybe there are companies or organizations out there that would sponsor Marin in her swimming competitions. I don't know that much about it but if anyone knows, please pass the info onto me and also perhaps to that company, etc.

Secondly, as far as her therapies, suppliments, etc., there has to be some type of organizations that help out with this type of thing also. Perhaps the Shriners, Easter Seals, etc. If anyone knows or has any info on any organization out there regarding this as well, please let me know.

Remarkably, I think all three of our kids are doing great. I have been trying to sheild them from all of this although it's been rough. I must admit that though taking care of them, the neglect on myself has been huge. I now have a stomach ulcer, no suprise! Once again, I keep thinking how much can a family take. I guess God has chosen us to be the test.

Please know that through all the chaos, I feel thankful. I look at each and everything as a blessing to better ourselves as a family and our friends and extended family as a community. Please pray for these various things I have requested above as well as for our peace, strength, and most importantly, Marin's continued road to health! Every second of every day I am so thankful that I still have her to spend time with. She grows more beautiful each and everyday and her joyful spirit is an inspiration to everyone.

Medically, Marin is scheduled for an MRI today. After the MRI, and if her counts are o.k., we will start chemo this afternoon. We are hoping we can start for the first week in April myself and the kids are going down to So. California to be with my mom and siblings.

Tomorrow is another big day with both the Sammi Awards and the Make-a-Wish annual auction and gala. We have chosen to attend the Auction since Marin is the featured person in their annual report, they have done extensive interviews with her, are running the Komo 4 story, and it's a fundraiser. The Make-a-Wish foundation was so awesome to our family, hopefully Marin's presense at the event this evening will help other children's big wishes come true. Marin's teacher, Ashley is going to the Sammi Awards on Marin's behalf and has prepared a little speech that her and Marin wrote in the event that Marin wins the Courage Award.

Thanks again to all of you for the support, love, and understanding. Thanks for following along side us through all our turmoil these last few years.

Swim Marin Strong!!!

Big hugs,
Nancy and Marin
Matt, Camie, and Michael


P.S.: I guess me sharing this with everyone Matt feels is totally inappropriate and he spent the whole morning telling me so. I think it best that I just don't share what's really going on anymore. Please just know that your prayers are really, really needed.



Friday, March 16, 2007 9:31 AM CDT

Good Friday. This is Nancy writing on Marin's behalf. I actually haven't been writing in a long time and I've had Matt doing it. I guess the emotional side of me has been taking over and it's been very difficult for me. Matt doesn't feel everyone of you that reads this is interested in our issues, etc. but only those of Marin. I beg to differ, especially when they affect Marin.

Firstly, Marin does continue to do great. Her attitude is still shinning strong. When I took Marin to swim with the para-atheletes on Sunday she did have a break down. She wants soooo badly to race again in the pool. It was very coincidental that we were going to swim that day with the person who can help that happen for Marin. Kiko is the coach who coached the para-olympic team in Greese. She has wonderful insite, info, and knowledge on this whole arena of competition and feels very strongly that Marin would do very well competing again in the para-athlete division. I know once I get Marin to one of these meets, she will feel "whole" again. Part of what made Marin Marin, was her competition. She loved the thrill of it. Perhaps that was why she was a sprinter. When she hit the water, she immediately gave it her all and continued to until she pooped out. When she swam at the high school state meet I could see the joy she experienced from that all over again. Her comment was,"I want to do that again!" Anyway, this brings us to our on-going trauma.

Matt has lost his job. We have pretty much used up all his income on paying bills and, frankly, I don't know how we are going to survive until he gets another one. I really can't go out and get a job right now. I am taking care of Marin, trying to manage everything else, and have Michael at home with me all the time. He will start kindergarden in September. The whole thing really doesn't suprise me considering all the stress he's under. We still have all the continued therapy, suppliments, medicine, etc. that I can't stop doing. It's amazing right when Marin wants to start competing this happens. In order for her to compete, the meets are all over the country, not just in Seattle. When there are so few people in her situation, they have to travel to compete against eachother. There is a meet in April that the judges that classify Marin are going to be there, and it's in Michigan. She really wants to go.

Now, to try to figure out some solutions. I first thought for the swimming, maybe there are companies or organizations out there that would sponsor Marin in her swimming competitions. I don't know that much about it but if anyone knows, please pass the info onto me and also perhaps to that company, etc.

Secondly, as far as her therapies, suppliments, etc., there has to be some type of organizations that help out with this type of thing also. Perhaps the Shriners, Easter Seals, etc. If anyone knows or has any info on any organization out there regarding this as well, please let me know.

As for our immediate survival, Matt is going to have to go out and get any kind of a job to keep us afloat until he lands another broadcasting job.

Remarkably, I think all three of our kids are doing great. I have been trying to sheild them from all of this although it's been rough. I must admit that though taking care of them, the neglect on myself has been huge. I now have a stomach ulcer, no suprise! Once again, I keep thinking how much can a family take. I guess God has chosen us to be the test.

Please know that through all the caos, I feel thankful. I look at each and everything as a blessing to better ourselves as a family and our friends and extended family as a community. Please pray for these various things I have requested above as well as for our peace, strength, and most importantly, Marin's continued road to health! Every second of every day I am so thankful that I still have her to spend time with. She grows more beautiful each and everyday and her joyful spirit is an inspiration to everyone.

Medically, Marin is scheduled for an MRI today. After the MRI, and if her counts are o.k., we will start chemo this afternoon. We are hoping we can start for the first week in April myself and the kids are going down to So. California to be with my mom and siblings.

Tomorrow is another big day with both the Sammi Awards and the Make-a-Wish annual auction and gala. We have chosen to attend the Auction since Marin is the featured person in their annual report, they have done extensive interviews with her, are running the Komo 4 story, and it's a fundraiser. The Make-a-Wish foundation was so awesome to our family, hopefully Marin's presense at the event this evening will help other children's big wishes come true. Marin's teacher, Ashley is going to the Sammi Awards on Marin's behalf and has prepared a little speech that her and Marin wrote in the event that Marin wins the Courage Award.

Thanks again to all of you for the support, love, and understanding. Thanks for following along side us through all our turmoil these last few years.

Swim Marin Strong!!!

Big hugs,
Nancy and Marin
Matt, Camie, and Michael


Tuesday, March 13, 2007 11:49 PM CDT


After a good weekend where Marin had some fun and still managed to work, she's been back at her therapy with all the spirit of the best among us. After a morning OT session, Marin enjoyed her photography class with Elizathabeth and Naomi down the street. She really enjoys her one opportunity each week to get out and work with her friends.

Later it was on to the Bellevue Club for a good swim workout, and to wish our friend Carol a happy birthday. She is a lovely woman who works as a swim instructor and a lifeguard at the club and through the months she's been a wonderful friend to Marin. We appreciate all the people who've been so good to her and there have been so many.

We heard some cool news about the news story that ran last November on Marin. Our friend Eric Johnson at KOMO TV here in Seattle is up for an Edward R. Murrow award for the piece. That's like a Pulitzer Prize for braodcast journalism, ver prestigious. In case you haven't seen the KOMO news story, check it out on the web at:
http://www.komotv.com/news/4616302.html

Looking forward, never back,

Marin & Nancy,
Matt, Camlyn & Michael


Friday, March 9, 2007 10:29 PM CST


A good productive week concluded with Marin working hard this morning with her PT Debi then heading to the pool for another good workout to finish off the week. It's been a lot of effort for the girl this week, with rehab, school lessons and homework so she was ready for a long nap in the late afternoon.

While that was going on, Mom, Camie & Mike spent some time getting 'radical' at the local skate park. They built the contoured concrete structure around the new police station, so it's quite the scene as lots of local skate rats hang out all day directly across the police station parking lot. Mike loves the place and pesters us to go everychance he gets. He's quite accomplished on a skateboard, his bike, a scooter or rollerblades. We ride scooters around with him and it's a really fun place to hang out!

Marin was excited to hear that her swim coaches at Collins Hill were so excited to get her knitted hats. She's very proud of her ability to create these nice gifts, and it makes her so happy to be able to give back to her friends.

We heard some cool news about the news story that ran last November on Marin. Our friend Eric Johnson at KOMO TV here in Seattle is up for an Edward R. Murrow award for the piece. That's like a Pulitzer Prize for braodcast journalism, ver prestigious. In case you haven't seen the KOMO news story, check it out on the web at:
http://www.komotv.com/news/4616302.html

Have a great weekend,

Marin & family


Thursday, March 8, 2007 11:39 PM CST


Isn't it fun to recognize those ordinary moments in life that you know you'll always remember? We had something like that today after Marin's swim workout with coach Karen at the Bellevue Club. As we do most of the time, one of us will take Marin and Mike to the pool for the noon hour workout with the masters swim team, and we'll spend the time playing with Mike while Marin does her workout. Afterward, Mike jumped in to Marin's lap lane to antagonize her. He teases her and tries to get the best of her, but she doesn't back down. Their back and forth was priceless today and there's no doubt Marin has the upper hand, even as Mike has hard time grasping that fact.

The morning began with a good speech therapy session with Jessie, who continues to challenge Marin and take her to new levels. Then it was swimming, followed by a nice pick-up lunch of her favorite salmon sandwich at a local restaurant where the chef has taken special interest in Marin. Miguel always serves up a choice piece of fish for her macrobiotic sandwich and it's so nice that he goes the extra mile for her.

After and afternoon nap, Marin worked with Ashley this evening and then enjoyed 'American Idol' before bed. (Wow, there's some good talent this season!)

We heard some cool news about the news story that ran last November on Marin. Our friend Eric Johnson at KOMO TV here in Seattle is up for an Edward R. Murrow award for the piece. In case you haven't seen the KOMO news story, check it out on the web at:
http://www.komotv.com/news/4616302.html

TGIF everyone,

Marin & family


Wednesday, March 7, 2007 10:58 PM CST


Up and it early today, Marin worked with her OT from school Sue and was very productive this morning. Sue always has creative ways to get Marin to be more resourceful and today their work together resulted in a nice strawberry desert dish. Later it was off to the pool for a swim workout with coach Karen. Marin is getting ready for a para-athlete swim meet next month and she's really putting in some great work. The dear little girl just keeps plugging away.

School work continues to go better as well where she looks forward to doing her work when she has any 'downtime'. She really enjoys her work with Ashley, who does such a good job of keeping the learning process lively. Later in the evening when Mom took Camie to a dance class, it was Marin and Mike hanging together again for a little while. It's so fun to see them 'babysit' each other. Mike tries to take charge, but Marin has more power than he realizes and she runs the show... but he's definitely a challenge for her. It's all good, though, they have a fun time together. And it's important for Marin to have this kind of responsibility to help build her confidence.

Tonight it was enjoying American Idol and then off to bed. We hope you're all well.

Marin & Nancy, Matt, Peach & Spidey



Tuesday, March 6, 2007 11:48 PM CST


Thanks for being patient with us as we've had some internet problems over the last several days. It was a fun weekend, even with the inconsistent weather. Marin enjoyed an afternoon of fun Sunday as her friend Molly invited her to go out for a movie. Frankly, it says a lot that we're able to feel relaxed in allowing Marin to have an afternoon/evening to herself with her friends. Make no mistake, she's shown that she's more than capable of handling her social situations... it's simply that we're always 'en'guard' for potential awkard situations, but the reality has been that Marin and her friends have been more than capable of handling the situations.

That's a tribute to Marin's spirit. Each day she's very structured from the time she gets up through her last effort in the evening. Her determination remains on of our greatest source of inspiration. She's been doing better and better everyday in her speech rehab and physical improvement have been a wonder. But above all of this, her ATTITUDE remains an example of the very best amomg us.

Prayer... and spiritual intensity remain an important part of how well Marin continues her life. We appreciate how so many of our friends have been in our corner physically and spiritually. The day to day enjoyment is worth everything to us as the simple pleasures in life override: Marin doing better everyday, Camlyn feeling better after a long weekend of food poisoning, and Michael going along strong ( and impressing everyone during his first little-league practice). A good time by everyone.

All the best,

Marin & family


Friday, March 2, 2007 11:40 PM CST


Wow, what a nice day to read the guestbook. It made us a little misty-eyed to hear from everyone who enjoyed the CHS swim banquet and Marin was so flattered to hear that everyone enjoyed her hats. She has a lot of pride in her knitting, but more importantly she was so happy to know how much her coaches, teammates and friends appreciated her knitting.

Friday was spent hard at work in rehab. Marin worked with her OT Beth this morning before going for a goood swim with coach Karen (happy birthday Karen). Later, the good work continued with Ashley and her schoolwork followed by a little relaxation, much deserved. The weather has mellowed out a little bit, and we're looking forward to a nice weekend.

We hope all is well with everyone,

Marin & Nancy, Matt, Camlyn & Mikey,

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Thursday, March 1, 2007 10:28 PM CST


A little work and a little play makes for a well rounded day. Marin worked with her speech therapist Jessie first thing in the morning and then did some PT with Debi as well, but with snow on the ground and lots of things to get done, we called it a day early taking a break from the pool today. She used the time to rest a little and do homework and in the afternoon it was the Marin & Mike show. Just the two of them were home together with the rest of us out taking care of business. You can imagine the adventures, and if Mike thinks he's gonna run circles around his slower moving big sis, he found out differently. Actually Mike was a very good boy and he helped out wonderful while Marin looked after him. Together they watched a movie and played games and to see them interact is really touching. Mikey challenges her (as he does everybody) and Marin doesn't back down. And Michael was feeling especially proud as he went to sign up for Kindergarten today.

By the end of the day, the snow on the ground melted so we won't be able to use that excuse tomorrow. We hope everyone has a good Friday.

TGIF,
Marin & Nancy, Matt, Camie & Mike

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Wednesday, February 28, 2007 11:27 PM CST


Reading the guestbook over the past few hours has been very touching as so many good friends, an friends we've never met, have made our day with your nice comments about the recent photos we've posted. We're so happy to share these pictures with you and glad you're able to share the spirit of the photos.

As always, a busy day from early morning on. Wednesday was made all the more difficult as SNOW poured down all around us throughout the day. Travel difficulty aside, Marin's therapists all made a good effort to get to our house to get her work in. Unfortunately her school physical therapist arrived with a little bit of a cold, and it was a mutual agreement that it wasn't a good idea to work together today. That didn't stop Marin from her mission, though, as she continued to work on homework and managed to get in a swim session as well.

We're celebrating Dad's birthday in spirit even though he's off on a business trip covering baseball in Arizona. We're together in spirit, though and we'll have to eat cake when we get together when Matt gets home. Thanks for all the birthday wishes.

Thawing out once again,

Marin & Nancy, Matt, Camie & Mike
HBD Dad


Tuesday, February 27, 2007 10:12 AM CST


New photos, oh my!! We wrote about out new friend Lynette Johnson a few weeks back and she does amazing work with her camera. Now that we're a little more computer literate, we can rotate the photos a little more oftern. We're so proud of these pictures that Lynette took for us through her charity organization 'Soulimanation'. She really brought out the best in all of us and truly captured Marin's spirit on film. We are truly grateful for her generosity of time, talent, and energy. We'll rotate more of the portraits through in the coming weeks.

Monday was a pretty good day for Marin as she showed good progress once again in her therapy sessions. Her speech with Jessie is going well as she continues to work diligently and show improvement. Later in the morning, it was off to the pool where she really looked great. On Sunday (happy birthday uncle Kelly), she swam with her Shadow Seals para-athlete group and looked AWESOME when they did their sprints for times at the end of the workout. She balanced on the edge of the pool to dive for her starts and tore through the water with the purpose of a great competitor. It was beautiful to watch. There are some meets coming up later this spring that we'll have her entered in, so she's getting ready.

Back to Monday, and in the afternoon we were visited by a video crew from the Make A Wish foundation who are doing a segment on Marin for their annual gala event in Seattle. Marin dressed up pretty and was flattered to be featured and the entire family got in on the action. School with Ashley followed and homework to finish out the evening. A good start to the week, all in all. We hope you have a great one, too.

Swimming Strong,

Marin & Nancy, Matt, Camie & Michael


Monday, February 26, 2007 0:57 AM CST

Wow. Hope all had a wonderful day. Marin surely did. Nothing monumental, just Marin being Marin.

It was great to hear about our dear friend Zack's barmitzva. I fondly remember when I was a young adult going to my friends. It is so touching that Marin is being thought of at these special occations.

Marin continues to knit and has picked up the pace a little bit. This weekend she made a knitted purse. Camie helped her by sewing the sides together. It really is cute! She also worked on homework for ashley, started making some beaded necklaces, caught a movie with her friend Naiomi, and swam with the para-athlete group. It's great how she finds things to do and hardly ever just sits idle. She's always excercising, trying to practice her talking or reading, and always playing with Michael.

Speaking of Michael, he woke up today with a 101 fever. He spent the day laying around which is sooo not like him. At about 4:00p.m. he did put his in-line skates on and rolled around the kitchen right when dinner was trying to be made. I hope he feels better tomorrow or off to the doctor's we go.

We really could feel a lot of love being sent our way this weekend. Sometimes we start to feel so alone and then think about all of you amazing people out there who have supported us for so long. We are beyond thankful.

Happy dreams,

Marin and family


Friday, February 23, 2007 5:23 PM CST


TGI Friday and it's been a good week to celebrate for Marin. She finished with her latest chemo session Tuesday and everything went smoothly. She was a bit tired early and mid-week, but not too worn out ot get back to her swimming routine, which she did Wednesday, Thursday and Friday.

And she continues to show significant improvement in her therapy sessions. This morning working with her physical therapist Debi, Marin was able to walk without her foot & ankle brace, showing a small measure of ankle stability that's been very slow in coming. She needed her cain to make the walk up and down the hall, and she did have a special insole strapped to the bottom of her foot, but the ankle stability was very encouraging. Marin told Debi she's been practicing that every morning on her journey from her bedroom across the hall to the bathroom. She's working on getting better from the moment she wakes up, and her determination is paying off. All of this was on top of some productive knee movement that she continues to improve upon.

At swim practice today she looked strong in the water and was particularly impressive to a visiting newspaper reporter who's taken an interest in Marin's story. She's proud to show what she can do and it makes her feel special when people watch her.

Looking forward to a fun weekend,

Marin & Nancy, Matt, Camie & Spidey


Wednesday, February 21, 2007 11:56 PM CST


Marin has had a constant smile and a blush in her cheeks after we read her many of your comments in the guestbook about how nice she looked on Tolo night. Thank you for helping our little girl feel so good about herself, and for those checking in for the first time in a while, enjoy the new photos of Marin and her friends on a big night out a week or so ago.

Since finishing her latest course of chemo yesterday she's been a little worn out but not standing pat. She worked with her school therapist this morning and then went swimming for the first time in several days. Marin looked great in the water and admits getting back in isn't always easy but it's so worth it. Several of her therapists have been out sick in recent days so her schedule hasn't been as full, but that's about to change as the week wears on. School holiday is over Thursday so she'll be back to a full load of lessons. As it is Marin always has lots of homework on the table so there's never nothing to do. She likes the stimulation and challenges, so it's not really a chore for her either.

Since the low blood counts last week, Mom has been on a tear feeding her the best of the macriobiotic fare, including loads of raspberries and blackberries, broccoli soup and even a batch of squash soup. The staples of salmon, tuna, and hard boiled eggs may become a bit monotonous, but their her base source of protein and her diet is certainly working for her.

We're thankful for every day, and getting better,

Marin & Nancy, Matt, Camie & Michael


Tuesday, February 20, 2007 0:24 AM CST


By popular demand, we've updated the photos on Marin's web page and in her photo album. These are some of the pictures from her night out with Molly (seen in the photo above with the white feather boa) and friends from Bellevue High who included Marin on their winter tolo dance. Her nice white hat really topped her outfit which was on loan from our good friend Lisa F. who offered her fashion expertise. Thanks Lisa! Marin was escorted by her friend Aaron, who's a lifeguard at the club where she swims. She had a wonderful time and was thrilled to get out on the town with people her own age and go dancing like a regular teenager. It's admirable to note that Marin is enrolled at a different high school, East Lake, but the gang at Bellevue have adopted her as a friend at it makes her feel very special.

We also have some wonderful photographs taken recently by our new friend Lynette Johnson as part of her Soulumination foundation. We'll post those soon, but we wanted to show these pictures of Marin's special night first.

We've been having a little trouble with the updating mechanism recently so hopefully this goes through and we offer our apologies. Having updated the past two days only to realize it never posted, I'll try to recap. Marin started her chemo on Thursday and through Monday it's gone very smoothly. We believe the close attention to her good food intake this week not only helped boost her white cell count, but pumped up her arteries and veins so that there hasn't been a single miss so far in the four days of infusion.

Saturday after going through her treatment at Children's hospital in the morning, Marin heroicly spent the entire afternoon as a demonstration model at Northside hospital where she took part in a clinical training session for a specialy designed hand splint. The Saebo-flex was designed to help stroke victims retrain their neuro-system to help rehabilitate hand movement in people suffering from paralysis. She spent more than four hours in demonstration helping therapists, including her OT Beth, who facilitated our involvement with the program. The possibilites are encouraging and we feel hopeful this will be helpful for Marin, who so far has had virtually no movement in her right hand, but she remains determined. We'll see in around six months or so what kind of affect the therapy has.

Through Monday she was doing well with her latest round of chemo although she's getting a little more worn out, as she tends to do. That didn't prevent her from doing a great round of speech therapy this morning with Jessie. Marin's ability to connect concepts has steadily improved, and she continues to step up to the challenges Jessie imposes each week. Later, after the hospital, she worked with Ashley and with her PT Debbi. Marin is doing more knee bends and squats because her glutes have diminished, and frankly, her butt hurts from sitting as much as she does.

Happy President's Day,

Marin & Nancy, Matt, Camie & Spidey


Monday, February 19, 2007 11:41 PM CST


By popular demand, we've updated the photos on Marin's web page and in her photo album. These are some of the pictures from her night out with Molly and friends from Bellevue High who included Marin on their winter tolo dance. Marin was escorted by her friend Aaron, who's a lifeguard at the club where she swims. It's admirable to note that Marin is enrolled at a different high school, East Lake, but the gang at Bellevue have adopted her as a friend at it makes her feel very special.

We've been having a little trouble with the updating mechanism recently so hopefully this goes through and we offer our apologies. Having updated the past two days only to realize it never posted, I'll try to recap. Marin started her chemo on Thursday and through Monday it's gone very smoothly. We believe the close attention to her good food intake this week not only helped boost her white cell count, but pumped up her arteries and veins so that there hasn't been a single miss so far in the four days of infusion.

Saturday after going through her treatment at Children's hospital in the morning, Marin heroicly spent the entire afternoon as a demonstration model at Northside hospital where she took part in a clinical training session for a specialy designed hand splint. The Saebo-flex was designed to help stroke victims retrain their neuro-system to help rehabilitate hand movement in people suffering from paralysis. She spent more than four hours in demonstration helping therapists, including her OT Beth, who facilitated our involvement with the program. The possibilites are encouraging and we feel hopeful this will be helpful for Marin, who so far has had virtually no movement in her right hand, but she remains determined. We'll see in around six months or so what kind of affect the therapy has.

Through Monday she was doing well with her latest round of chemo although she's getting a little more worn out, as she tends to do. That didn't prevent her from doing a great round of speech therapy this morning with Jessie. Marin's ability to connect concepts has steadily improved, and she continues to step up to the challenges Jessie imposes each week. Later, after the hospital, she worked with Ashley and with her PT Debbi. Marin is doing more knee bends and squats because her glutes have diminished, and frankly, her butt hurts from sitting as much as she does.


Friday, February 16, 2007 9:09 PM CST


TGIF and it was a good one for Marin. After debating whether we should take her for another try at a blood test and chemo, we decided to go for it and it turned out to be a good decision. Her white blood cell count jumped up plenty above the 1500 threshold, some 400 points better than the number on Wednesday. So she was able to get her first course and she'll continue for the next four days.

Later, Marin worked with Ashley on her schoolwork for the first time in several days, then had a PT session with Debi. Amazingly, she had another break through when she was lying on her stomach and able to move her right knee toward her rear, a move she's worked on for many, many months, but was able to execute without a helping hand for the first time today. She was so happy and proud.

Marin was also very proud to hear the news of how well her friends did at this week's state swim meet in Georgia. We're all so happy for the SWAT gang from all the schools who did so well, particularly Abigail's TWO state titles, as well as Jordan, Sarah, Kathleen, Erin, etc. Way to go, ladies! To add to that fun, Marin received a college recruiting letter from Lawrence College in Wisconsin. It was really flattering for Marin even though the program is clearly unaware of her circumstance... it's nice that she's still remembered.

Thanks as always for your prayer support, we're certain it worked for Marin this week.

Have a great weekend,

Marin & Nancy, Matt, Camlyn, and Michael


Thursday, February 15, 2007 10:46 PM CST


Sorry for the sporadic updates this week... here's the latest. Wednesday we went back in for Marin's blood test with the expectations of starting chemo but we were stunned to see her white cell counts dropped several hundred points below where they were Monday. Nothing alarming in terms of her overall health, but a shock to see the counts go way down in two days. They generally go up gradually over time, so this was a set back.

Marin has been feeling tired, not surprisingly, and several of her therapy sessions were cancelled due to a flu epidemic that's been going around town... many of the therapists have been sick or exposed and didn't want to expose Marin. She tried to go swimming today but ran out of gas, so it was better just to let her rest.

We'll try again for chemo either tomorrow or Monday. If she's feeling GREAT Friday, we'll give it a go... otherwise, it's worth waiting the weekend to boost the immune system with berries and such.

Saturday Marin will attend a seminar for a unique hand and arm device designed to work the paralyzed limbs of stroke victims. The research so far has looked good with a device called the Saebo flex. Marin's great therapist Beth helped her get selected as one of the demonstration patients, so we're hoping we can get a little payoff in the form of a good relationship with the company. The representatives have been very friendly over the phone and they're familiar with Marin's story, so the seem eager to help her as well. We'll let you know how it goes.

In the meantime, we're surviving pretty well despite the rain. We've seen a couple patches of sunshine this week, so we soak it up when we can. The weather turned colder again today so we're still not buying in to the groundhog's prediction of an early spring just yet... but we're hoping!

Hope is a great thing,

Marin & Nancy,
Matt, camlyn and Spidey


Monday, February 12, 2007 10:54 PM CST


To continue the story... Marin's Saturday night was a very special evening. Out with friends, a date to the dance and she looked absolutely gorgeous for the winter formal affair. The dinner with a group of friends from Bellevue High and her escort Aaron went great. Dinner downtown was nice with a group of eight. Afterward they went for coffee at a nearby Starbucks then went to the Seattle center for some fun before the dance. Unfortunately the weather took a downturn and the pouring rain (imagine that in Seattle) put a damper on that. Marin's cool knit boots got soaked she had to defer to her crocs for the rest of the evening, including the dance.

She had a terrific evening with Aaron and she was happy to dance like a regular teenage gal. She was glad that her friends and Aaron were able to overlook her mobility and everyone seemed to have a great time. Marin certainly did. Monday she called to tell Aaron 'thank you' and she felt she had to apologize for the 'shakines' in her right leg. It was pretty bold of her to pick up the phone and make the call to a boy considering her communication issues, but Marin pulled it off nicely.

Back to reality Monday, we went back in for another blood test and unfortunately once again Marin's white cell levels were just under the necessary threshold to begin he next round of chemo. We were terribly disappointed as another long morning in the hospital was essentially wasted, but yet we'll try again Tuesday morning.

Pray for the best,

Marin & Nancy, Matt, Camlyn and Spidey


Saturday, February 10, 2007 11:08 PM CST


Considering everything Marin's been through in the last two years, we would have to say that her Saturday night here was a milestone in one way, and certainly an answer to many prayers.

On this evening, Marin got dressed up and went out to dinner and a dance with frinds from Bellevue High school, including her friend Aaron who escorted her. I suppose you could say it was her first date! She was so excited when Molly and her friends wanted to include her in this special event and Aaron stepped up to make Marin feel extra special. We know Aaron from the BC pool where Marin swims and where he works as a lifeguard. He's always been so friendly to her and she certainly thinks he's a great guy. It was a fancy evening with a Winter formal type theme and Marin looked absolutely beautiful. To be honest, we haven't yet gotten all the details as she's still out on the town, but we know she had a wonderful time at dinner, and simply being out on her own with friends was great for her.

She spent the day doing rehab exercises on her own after her therapist called in sick. It's impressive how Marin takes it upon herself to make it happen. She's also knitting up a storm, with some special projects on her agenda.

We're looking forward to a restful Sunday (and prying the details of her date out of her) before going back in Monday for a blood test and hopefully the next course of chemo. We're having a dilemma as far as her IV goes; her veins are just pummeled and the doctors are suggesting we have a permanent port inserted in her chest. We feel we want to avoid this, Marin certainly does, so if anyone has any input on intravenuos issues, we're open to suggestions.

Thanks for all the kind notes this week, they always keep us going. Enjoy the rest of your weekend.

Saturday night on the town,

Marin & Nancy, Matt, Camie & Spidey


Thursday, February 8, 2007 8:31 PM CST


As promised, here's the latest from Thursday's visit to the hospital. Marin went in for an MRI and blood test today with the expectations of beginning her next round of chemotherapy. The good news is that the MRI, once again, looks very good and even perhaps an improvement over just last month. Officially, her doctor calls it 'stable', but we're very encouraged that we're seeing a reduction in the cancer cells. Fighting the good fight... and winning!

On the downside, Marin's white blood cell levels were low, so she'll not be able to start her next course this week. We'll go back in on Monday to try again. It's a disappointement but also typical of how it's gone the past several months. The chemo seems to be working and taking it's toll on her immune system, a trade-off that appears to be well worth it. And the best news is Marin is going strong, with lots of energy and determination even when she's a little tired.

Therapy, school work and swimming take up a large part of her week, but she still manages to get around to some knitting and 'American Idol'. Always keeping a great attitude, witht he help of Spidey and Camie, she's doing really well right now. Thanks as always for your love, prayers and support.

Seeking springtime,

Marin & Nancy,
Matt, Camlyn & Michael


Thursday, February 8, 2007 3:34 PM CST


Heading in to the weekend, Marin has had another good work week around her therapy, with Anne, Debi, Beth and Ashley all putting her through her paces. As always, Marin is maintianing a great demeanor and she's being rewarded with little bits of progress every day.

Today she went in for her latest MRI and blood tests with the intent of begining her next course of chemotherapy. Right now we're waiting for the test results and we'll update you later when we get that information.

In the meantime, send up a prayer for her continuing good health. Thanks, as always, for your wonderful support.

Love,

Marin & Nancy,
Matt, Camlyn & Michael


Tuesday, February 6, 2007 0:25 AM CST


Monday February 5, 2007 was a special day as we all enjoyed Michael's 5th birthday. The little toad was so excited from the moment he woke up this morning, proclaiming for the first of several times during the day, "I can't believe I'm five years old!!!" It's a very special joy and it was wonderful to have our entire family with us and so many special friends and neighbors share this day.

Marin was particularly radiant as she observed Micheal and his friends enjoy a fun afternoon-evening at his birthday party. We hosted around 20 children at a local bounce-party place with pizza and cake and it was a gas! Camie and her friend Natalie helped and a number of parents attended; a nice social three hours that went pretty quickly, and not a bad way to spend Monday evening. Mikey raked in a bunch of great presents and we spent the remainder of the evening playing with as many toys as we could and reading books before we all dropped dead of exhaustion.

Marin managed to have a good time, enjoying the smaller children having fun, even without being able to partake in the pizza or ice cream and cake... not macrobiotic, you know. But she did enjoy some of the games like air hockey and free-throw shooting, and chatting with the adult guests. This was all on top of a full day of speech rehab, swimming, and school with Ashley. In her spare time, she knitted a cap and started knitting a purse! Cool.

Happy birthday Spidey, we all enjoyed it!!

Birthday Boy Mike, Marin
Nancy & Matt, Camlyn and frinds.


Sunday, February 4, 2007 12:16 AM CST


Hi everybody. First allow us to apologize for the current situation with the guestbook. For some reason it's frozen and the Caringbridge administrators are unable to help until Monday. We're unable to connect in and get rid of some of the ugly posts, so we're at a standstill until tomorrow. Sorry.

In the meantime, it's been a productive time for Marin who's been knitting up a storm. Her colorful hats are starting to pile up on her table and she has the beginnings of a product line. At some point she wants to start her own little business, and she's putting in the effort now.

Saturday started out with a good therapy session with her PT Debi and Marin worked hard in the morning. Then we enjoyed a fun afternoon when Molly asked Marin to join her to cheer on some friends at the boys high school league swim meet. We met Molly for lunch at a Mexican restaurant and enjoyed a good meal before going over to the pool with Molly. It was great for Marin to hang with some people her own age. Molly is such a sweet young lady and she helps Marin feel relaxed and good about herself. She's also getting acquainted with a number of friends from Molly's circle so she's comfortable in the crowd that includes boys and girls, some of whom she knows from the Bellevue Club and they've reached out to be Marin's friend. I think she had a great day.

Sunday will be a relaxing day of rest, knitting, and the Superbowl! Have a great day.

Marin & Mom,
Matt, Cami, & Spidey


Saturday, February 3, 2007 11:46 AM CST


Thursday we met with the staff at Marin's school to get her IEP program worked out and Mom did a great job advocating for her rights. Her education is such an important factor going forward but managing the special circumstances is difficult. Great job Nancy!!

Friday was eventful, beginning with Marin's work with her OT Beth. The new move today was a shoulder lift that we haven't seen before now. With her right arm at her side, she was able to lift her elbow out and up like a wing to almost 90 degrees. A simple move most of us take for granted, but definitely a breakthrough for Marin. All her hard work in therapy continues to pay off.

After OT, it was off to the pool for a good workout with coach Karen. Marin looks really good in the pool, and she regularly beats Dad when they do a match race (one handed, of course). Later in the day Marin had a little independence as Mom took Cami and Michael skiing and Dad went to work. Marin enjoys doing things for herself and a few hours alone gives her a sense of self reliance that she seems to be proud of. Beth her PT arrived later in the afternoon for another therapy session, then it was time for a well deserved nap.

We're looking forward to the weekend, even with more therapy in store for Saturday, we'll also get a chance to do something fun... and of course the Superbowl is Sunday, so we'll have to dial in to that. Hope your team wins, or at least the one you bet on!

We made it through Ground Hog Day! (Happy Birthday Uncle Ron),

Marin & Nancy,
Matt, Cami, and Spidey.


Thursday, February 1, 2007 0:11 AM CST

Good evening everyone. Marin, once again, had a wonderful day full of sunshine and smiles. She remains so positive it just is incredible.

Yesterday Beth, her OT, came with a new splint for Marin's hand. This splint, called the Sabo-splint, is part of a new process we are trying for Marin to possibly gain some movement in that right arm. Right now, Marin's hand and fingers are very tight with her hand curled up most of the time. She wears a splint that helps it a little but the tightness is still pretty bad. This new splint keeps the fingers a little more straight. She is starting to wear it for an hour at a time, about three times per day. It has a lot of adjustments on it so as her fingers relax some, the sprint can be adjusted.

The next step for the hand is a splint that has springs attached to each finger. These springs will facilitate Marin opening and closing her hand. They will teach her to run through a number of exercises to open and close her hand with the use of these springs. The goal is that wearing and using this for months and months will re-train the brain to remember to move this part of her body. We are very hopeful on this new divise and possibility of some movement.

After a short therapy session this morning with her PT, Marin, Michael and I headed to the pool. A few days ago, Marin decided that she is going to keep a record of how far she is swimming. This way she can focus on a goal and improvement. The first day of keeping track Marin swam 1,500 yards. The second and third day 1,000 yards. Today Marin swam 2,100 yards. She realized that she slid back and worked extra hard today to make up for it. I am excited that she is setting goals and striving to improve. We have an appointment in two weeks with a person to qualify her regarding her paralizes. Once Marin gets this ranking number, she can compete for times based on this. I don't fully understand it yet but will learn as time goes on. In the meantime, I keep encouraging her to sign up to go to some of the swim meets. I think she is ready to compete again. Yes, her competing against regular kids is mentally extremely tough, but then again Marin is extremely tough. It's wonderful that she continues to set so many goals for herself and her future.

Lately, as you can imagine, Marin has grown pretty sick of me. She says "when I move out," etc., etc. She then smiles and laughs. We keep plugging away at improving her, physically, mentally, emotionally, and health wise. I love Marin so much I hope I can help her become all she can be.

Marin's drawing continues to improve as well. I would like to explore her taking some drawing classes.

Tonight we just finished watching American Idol. Not much excitement tonight. Seattle definately had crazier and entertaining people.

I've been having a lot of trouble sleeping again. Two nights ago I got an itch and painted my kitchen. It's a dark cinnimon color. Looks great! What a nut I am!

Thanks for the wonderful support and encouragement. Please keep the suggestions, comments, etc coming. We soak them all up like a sponge.

Soggy in Seattle,
Marin and Nancy
Michael, Cami, and Matt

(P.S.: Spidey is going to be 5 on Feb. 5th. It seems like yesterday he was just a baby!)


Wednesday, January 31, 2007 1:29 AM CST



What a wonderful breakthrough Tuesday it was with Marin the star of attention but brely noticing. Her therapists have continually reporter steady, if slow, growth in almost all areas, and today she broke new ground yet again. While swimming at the Bellevue AC, and working hard toward competitition, Marin without knowing made a turn, and a breakthrough by bending her knee on her right leg while making a flip turn. Everyone watching her swim noticed the significance of the flip-turn but Marin was unaware. When told about what she did, she understood the step forward and really felt great. Over the past several weeks she's had several physical steps forward that continue to surprise us an inspire us.... her ankle and foot moving more than ever, her knee bending during swimming, all areas that she's working hard at, but also an indication that the healing process is always capable.

This week in the pool she showed Dad and Mike who's boss by beatin them both soundly in match races in the pool. It was great to see marin's competitive muscle on tj
he pool dech, Marin & Nancy, Matt, Cami, & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Monday, January 29, 2007 12:23 AM CST


We had a nice experience Sunday when we were interviewed by a local radio station for an upcoming Make A Wish radiothon. Marin was quite excited about the a opportunity to speak about our wonderful trip last spring and she did a good job. Mom was great, too, filling in the story as we went along and Dad helped out too. The story is among several the station taped with local families who've been helped by Make A Wish and will be played throughout the day on a special fundraiser program.

We enjoyed another day of bright sunshine here and we did everything we could to take advantage. At one point, Marin walked out front of our house and out to the sidewalk where the sun was streaming down and stood with her eyes closed and a huge smile on her face just soaking up the rays.

This morning she's working with Jessie on her speech and telling her about the radio interview. After that, we're off to the pool for a workout and our week is off and running. Here's to continuing forward motion.

Have a good Monday,

Marin & Nancy, Matt, Cami, & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Sunday, January 28, 2007 10:34 AM CST


Clear and cool this weekend, it's been a bright one so far for Marin. Saturday she had a great day working with her OT Beth, who truly inspires her and all of us. In addition to coming up with imaginitive tasks that will help Marin deal with a daily routine, she also works her problem areas and we are definitely seeing results. Her right arm motion is an area of focus and Beth has her doing daily exercises that help improve her range of motion and improve her strength. The work is hard and the results incremental but Marin never complains; she's driven by the prospects of any gains and it's inspiring to see her work so hard.

In the kitchen she's also exercising more and more independence. After shopping for groceries, Beth had Marin make her own lunch, from toasting and putting spread on her macrobiotic bread to slicing the tomatoes for her sandwhich. Marin is very determined when it comes to doing as many tasks as she can for herself and the more she learns, the more excited she gets. There are all sorts of tools and gadgets for people with limited use of their arms or hands and Beth has done a nice job of introducing Marin to the possibilites. A one-handed apple peeler, nail clippers, a knife with a special handle that allows her to slice food. Marin felt very proud of her efforts and accomplishments Saturday.

Today's she's being interviewed by a radio station for the Make A Wish fundraiser and she's very excited. She's loving the sunshine we're having, even if it is a bit chilly to be going out and about. Nevertheless, it's a nice weekend and we're enjoying it. We hope everyone else is doing the same.

Sprintime in Seattle...? No, but we can dream,

Marin & Nancy, Matt, Cami, & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Saturday, January 27, 2007 0:35 AM CST


TGI Friday and we hope everyone can feel as accomplished as Marin. Up & at 'em early for a therapy session with her PT Debbie, Marin was working her right ankle like she never has since her paralysis. Her right calf, ankle and foot have needed an AFO brace for stability and she's had very little ability to move the joint, but she's been working diligently and today she wowed Debbie with her ankle movement. She's a long way from being able to do without a brace, but this is a strong indicator that she is able to improve and perhaps she'll be able to use a modified brace before too long. Very nice break through, but also a testament ot how diligent Marin has been in doing her work. It's very exciting.

So nice, she was rewarded with enough time to take a long nap before getting back to work with Ashley and her school lessons. As always, a little challenging, a little laughing, always a good afternoon. This weekend she's scheduled for more work and a little R&R Saturday. Marin will have a little independence as Mom takes the kids skiing and Dad has work, so Marin gets a couple hours to herself. On Sunday, she has more excitement as she goes downtown for an interview for the Make A Wish annual fund raiser. The Northwest chapter is featuring Marin's story among a couple others for their annual report and she'll be on the radio later this month. Very cool. In the meantime, have a great weekend... we plan to.

Cool but not too cold in Seattle,

Marin & Nancy, Matt, Cami, & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Friday, January 26, 2007 1:18 AM CST


It's been a fun and productive week for Marin as she's been focused in on her therapy and school work. Her therapists and teacher Ashley have been challenging her more and it shows as she continues to improve in so many areas. Always a hard working student, she used to complain about her quantity of homework in the old days, but now she seems to tackle it eagerly, even when she's behind in her assignments.

Thursday we had a fun evening with Marin's pal Molly who invited her to go to a school drama improv show. The kids were hilarious as they made up each sketch as they went along. Marin got a bick kick out of the entertainment, and more importantly, just getting out and being with a lot of people her own age. She did admit that she is more self-conscious about walking with a cane and such when she's around her peers, but she handles it very well. She was pleasantly surprised to see a friend from the pool she works out at and when he stopped to say hello to Marin & Molly, she felt kind of special. Aaron is a lifeguard at the Bellevue club and he's always very friendly and encouraging to Marin when she sees him at the pool. It was nice for her to feel like she's just running in to friends around town.

At the same time, she received some notes from a couple of her good swim buds from GA and that made her day. Sarah and Emma are such sweet girls (and great swimmers!) and it's always so nice to hear from them. We remember spending so many weekends together sitting on blankets by the pool, maybe playing cards or games, at swim meets all throughout the south. The memories are wonderful and Marin holds on to them fondly. Thanks for reminding us how fortunate we have been in our friendships.

Enjoy a great weekend,

Marin & Nancy, Matt, Camlyn & Michael


Tuesday, January 23, 2007 11:54 PM CST

Yea!!! We are sooo happy to be able to read your journals again. We can't believe how dependent we have become on your constant encouraging and uplifting notes. Now us Morrison's can take a big sigh of relief to have a part of this back that has become so important.

Just goes to show us all what a technology world we live in today. Yesterday Matt was in the garage going through a few boxes (we still have mounds of them!) and he came across an old little video game unit we had when Marin was small. It's a box you plug into the TV and has games on it like pack-man, space odyssey, and these little cars racing each other. It's truely amazing how far and fast technology has expanded in just a decade. Michael, by the way, is completely thrilled with the games. He has been squeeling with delight as he runs through the various ones.

Marin had a great, fun-filled day today. She started out with Zoom cereal, 100 whole-wheat cooked, with a little added flax seed. (I try to add this whenever possible) She then got dressed and went out with her friend Naiomi to do their photography class. Today, Naiomi's mom, Elizabeth, took the girls to a local park and they photographed ducks in the lake, the beautiful trees, and tried to capture the atmosphere. Marin loves taking pictures. She has a little, somewhat cheep, digital camera but can suprisingly do quite a bit with it. If she get really into the photography, I will of course get her a fancier camera.

After photography we headed off to the pool. What a joy it is to see Klaus, Karen, and Carol there so happy to see Marin. They encourage Marin, push her, and just make her feel so good about life. The pool is the perfect temporature for her. At the end of her workout, Michael tends to sneak down into her lane and torture her for about 10 minutes. It's so enjoyable to watch Marin in the water and watch her interact with Michael. How happy they are together.

We then headed off to get Camlyn and headed downtown to do a photo shoot with an incredible photographer who has a organization and takes photos of cancer people for no cost. Lynette Johnson is truely inspiring watching her in action. Her photos around her studio are just breath-taking and we can't wait to see the photos which she said should be ready some time next week.

After the shoot, we went out to dinner and then came home. Marin was smiling and I think really happy to be hanging out with her siblings and not doing doctor "stuff."

Next came Marin's and Camlyn's voice lessons which Nancy, their voice teacher, brought the hit from Carry Underwood "Jesus take the wheel." Their voices are coming along nicely and they were really jazzed about the new song.

Marin ended her night watching American Idol along with 32 million other Americans. We enjoy watching it and have for several seasons now. On Sunday, Cami and her friend, Natalie, found of the contestants doing hair in a local salon and we went in and they go his autograph along with a picture with him. It was so cute how excited they were with their new-found claim to fame.

Thank you, thank you, thank you for the wonderful support you each give us by following Marin's story every day. I cry daily on how I am so appreciative of all of you.

Marin's angel tree is now in her roon where she can lie in bead an see all the angels looking over her. It is so beautiful, just like her.

Many sweet dreams to all,
Marin and Nancy
Matt, Camlyn, and Michael


Tuesday, January 23, 2007 10:13 AM CST

Hi everyone. Apparently, something has happened to our guestbook. I hope and pray that it's not lost permamently. I can't tell you how much we need to be able to read those entries, just as you need to read our updates!

Anyway, I can tell you about our dear little Marin and how she is doing. Yesterday, Monday, we were on track starting the week off really good. Marin started her day with Jessie, her speach therapist, and from there we went to the pool. She continues to look stronger and stronger in the pool. I know that the chemo, after taking it for 1 1/2 years, has taken a toll on her body. Her strength continues to hold strong, yet I know when we finally finish all the poison, and get it out of her, she'll show a new burst of energy and strength. For now, however, we will continue to fight this evil cancer in her, and let her enjoy what helps her breath and be whole, her swimming.

Marin received a photo of her friend Abigal and a paper she wrote for school about Marin. It really touched our whole family. Several others of you have sent her photos of yourselves as well. I want to express how happy this makes Marin feel when she receives these photos.

I have a new idea regarding photos of her friends. Marin has been making cluster of pictures in her room of magazine clippings, etc. I think it would be great if any of you would care to send photos of yourselves and she could make one of photos of you all. What a great thing to lie in bed and look at! So, all you photogenic people, please sent a small photo of yourself for Marin "Wall of Fame" that she is going to create.

As far as the snow here, it finally is almost all melted. The mountains still have a ton but Seattle is back to "normal."

Hope everyone is having a wonderful start of the week. I will post again tonight.

Happy day,

Marin and Nancy
Matt, Cami, and Michael


Sunday, January 21, 2007 10:25 PM CST


Thawed out, but still a bit chilly, it was nevertheless a nice weekend if only because we were able to see the sun for a few hours. Sunday was a day of rest for Marin as far as any visits from therapists, but she remains hard at work doing her exercises and homework without prompting. Marin's character really shows through in her day to day challenges as she's always motivated to improve and she doesn't need anyone reminding her.

On Saturday, she spent a big part of her day knitting an entire new hat and then worked on her drawing. You'd be amazed at the quality of her pictures and coloring when you consider she's doing all of it with her left-hand alone. Marin takes a lot of pride in her effort and independence. Today she continued to work on her right arm, doing the daily exercises to improve her mobility. She's also doing the daily homework for her mind, with her speech therapist Jessie prescribing a number of mental challenges to do around the house. Her speaking is getting better but it's not easy to notice because she still has trouble connecting the concepts in her head with the words coming out of her mouth, but at least when she gets there, the ideas are coming out in full sentences more and more.

We're looking forward to an eventful week booked full of therapy and a photo session with local photographer Lynetts Johnson. She donates her work to critically ill patients and she's gained quite a following from the excellence of her work and the kindness of her friendship. We hope everyone has a pleasant and productive week.

Moving forward and not looking back,

Marin & Nancy,
Matt, Camlyn & Michael


Saturday, January 20, 2007 11:29 PM CST


Nice to enjoy a little sunbreak as the snow has melted and temperatures in the 40's feel balmy by comparison. Marin worked with her PT Debbie for a couple hours in the morning then enjoyed the rest of the day off. While Mom, Cami & Mike took advantage of the ski slopes, Marin's kick-back Saturday wasn't all that relaxing though as she complained of boredom later in the afternoon. Oh well, she always has plenty of homework to 'play' with and special exercises are always a good option.

She's doing a great job of working her problem areas around the house using the stairs and other features to get her work in. Going up and down the stair case, Marin focuses on her right knee and hamsttring, even doing two stair at a time with her problem leg. As Ashley wrote in her guestbook today, her improvement is gradual but very noticeable.

it's nice to hear reports on Marin's swim friends from GA, adn we appreciate hearing from Rosie's pal, keeping us updated on the action in Gwinnett. Marin also had a little extra incentive today, during her work with Debbie, she received a phone call from her rehab friend Stephanie from GA. Marin and Stephanie worked together for months at the hospital in Atlanta where both were recovering from severe physical setbacks. The spoke a language all their own as they understood each other better than anyone else. Marin had a smile from ear to ear and the phone call really made her day.

We're looking forward to a great Sunday,

Marin & Nancy,
Matt, Camlyn & Mike


Friday, January 19, 2007 11:28 PM CST


Our daily routine continues but with renewed purpose and heavy hearts. We learned this morning that Marin's little friend from the Ronald Mcdonald House in Atlanta lost her fight with brain cancer. Catie was a true living little angel, just four years old, and she fought her illness so bravely for 3 & a half years. Our hearts go out to her parents Jenny & Tre, and we will remember Catie for her beautiful smile and wonderful spirit.

http://www.caringbridge.org/ga/catie/

Marin continued with her therapy and swimming on a Friday full of activity. She worked hard with two sessions of occupational therapy where she's being challenged to get that right arm in motion. She's working hard at it, but it's difficult. Afterward she went swimming with coach Karen and fit in a good work out. Later, Marin did her school lessons with Ashley, who also challenged her for slacking a little on her Math homework. For all she does everyday, there's a little more that her therapists have come to expect from her, and Marin thrives on the challenges.

Enjoy the weekend, and we'll do our best to do the same. Please keep Catie, Marin, and our families in your prayers.

Marin & Nancy, Matt, Camlyn & Michael.


Thursday, January 18, 2007 5:39 PM CST


With still a layer of 'frosting' all around, we did get back to our normal routine Wednesday. School was back in session, so Cami & Michael went back to their classrooms for the first time in a week. Snow days can be fun, but that can wear old, too, and everybody was ready to get back to business

For Marn that meant getting back to her therapy and school work. While some of her therapists made a great effort through the bad weather to come and work with her, she's now able to get back to the full schedule that she thrives on. She also worked with Ashley in the afternoon and always enjoys that time, especially yesterday when a 'social studies' lesson included an examination of the new People Magazine that arrived on a gift subscription from Ashley.

Today Marin worked this morning with Jessie on her speech therapy. The work is getting more challenging and Marin enjoys having tasks to do. She still has a difficult time in conversation, but she is doing a better job of using complete sentences when she speaks and it's clear she's improving. After speech, it was on the pool for a workout with coach Karen. It had been a while since she's been swimming, so it felt extra good to get back in the water.

We received a nice e-mail from a coach at the University of Connecticut, following up on a recruiting letter they had sent a few years back. After informing the coach of Marin's situation, she responded with a kind, heart-felt note and good wishes for Marin's recovery. UConn was the first of several big schools that sent Marin recruiting letters, including Notre Dame, Virginia, and others, and it was nice to hear from them again. We do know of some para-athletes who are swimming on college on scholarships, so it's nice to know there could still be some opportunities for her as she progresses. In the meantime, we're excited to hear about her swimming friends who are now getting ready to make college plans and following their careers in the pool.

Marin also received an invitation to have her photo taken by a wonderful photographer here in Seattle who donates her talent to the families of children with cancer. Lynett Johnson runs a studio called 'Soulumination' and we're very excited to have Marin photographed be her. We're setting up a sitting for sometime next week as really looking forward to it.

Thanks to everyone who offered words of encouragement during a tough week. It really helps us get through.

For now, we're slowly melting in Seattle,

Marin & Nancy, Matt, Camlyn, & Michael.


Wednesday, January 17, 2007 1:16 AM CST

Good evening. Well, once again we woke up to snow fall and once again, school was canceled. I think they have the kids going to school through the first few days in July. Hopefully they will rethink this and not make them do that. The weather has also remained really cold hovering around the high twenties, low thirties. It's been colder here in Seattle than in New York! Anyway, the people keep warming our spirit even if the weather isn't.

Marin started her day with photography class and her dear friend Naiomi. They took photos of themselves and an upclose photo of a hand. They then cut them both out and put their cut-out of themselves standing in the big hand. Under it they wrote "We're in his hands." It was so cute it made me cry. (It doesn't take much to make me cry these days.) This is so true. I know that God has a plan for our family, it's just very, very, difficult to see what it is at this point. I am so happy that Marin continues to hold it together so nicely and bravely.

Marin has been drawing a lot lately in addition to her knitting. It's amazing what beautiful pictures she is creating with her left hand. The last few days her arm and leg have been heavily weighing on her mind. She mentions frequently how she wants them to work so badly. Her OT, Beth, really said some wonderful things to her today. Beth explained to Marin that we all have struggles that we wish we didn't have. That we have something that we so deperately want to work but it's not. I also think the weather is getting her down. If funds were not an issue, I would love to take her to the sun and warmth to lay on the beach. I think it would do her a world of good. Maybe we will get into visual meditation. I heard this really helps when things such as weather start getting to you.

Tonight Marin went for her interview for the Sammi award. She fixed herself up really cute and I'm sure showed them how much courage she really has.

I have a request. Please pray for peace within our family. Marin is getting sick of hanging out with me all the time. Matt is getting sick of me too. We are all trying so hard but I think everyone is beat up. Thanks for believing in our family and Marin. Thanks for not expecting too much yet giving us encouragement to keep plugging along as we do. I wish I could be doing for others out side my home but right now I just can't. Thank God Marin is so strong! She is truely a person to admire.

Snowy and sleepless in Seattle,

Marin and Nancy
Matt, Cami, and Michael


Monday, January 15, 2007 11:51 PM CST

Hi! Hope everyone had a great Martin Luther King Day. We are still experiencing cold, snowy, weather here. The snow is sticking on the ground since last Thursday and more is expected tonight. We have record breaking snow now. Last winter we had recording breaking rain. What a crazy place! Anyway, Matt, Cami, and Michael took advantage of the snow and went skiing again today. Matt borrowed a snowboard from our neighbor Rob. Cami is also snowboarding and Michael is skiing. I think Matt took a beating today on the slopes. I heard him talking with his friend Rob whom he borrowed the board from and he made the comment that "it was like the first day of football camp." When he got home he immediately went to bed for a while.

Marin and I had an enjoyable day as well even though we were doing something completely different. Today was Marin's last day of chemo for this round. There was hardly anyone in the hospital today so Marin got quick attention. Her veins were working good and they got a line in on the first try. She has been really dizzy since last night but seems to be better this evening. Regardless of the chemo and dizziness, she was happy. I heard her singing several times today to herself. Right now she's knitting a new hat. She made Matt and Michael new ones in the last few days. Physically, Marin has been really tired so I haven't pushed her with the therapy or swimming. Hopefully tomorrow we will get back in the pool.

Tomorrow evening Marin has an interview for a nomination she has received for a "Sammi Award." This is a local award in Sammamish for various outstanding citizens in the community. I'm happy that the people here are also recognizing her greatness!

Changing the topic, I heard a study was done in Boston for people with prostate cancer and eating broccoli and tomatoes. Those people who ate broccoli and tomatoes saw on average a 50% shrinkage of their tumor!! I knew I was on the right track. Hope all of you are still eating your broccoli and berries! It's also great that the general public is becoming more aware of hydrogenated fats and how terrible they are for you. Several fast-food places, etc. are getting rid of this.

Hope everyone is healthy and happy. Thanks for the continuing support!!!!!!

Fondly,
Marin and Nancy
Matt, Cami, and Michael


Saturday, January 13, 2007 11:37 PM CST


Still cold and snowy in the great Northwest, so a good day to take advantage of it. Mom took Cami & Michael skiing and had a great day on the slopes, where Michael is taking lessons and already pushing it and Cami is learning to ride a snowboard.

In the meantime, Marin rolled through her third day of chemo without a hitch. The infusion specialist found a good vein quickly, so our stay at the hospital was minmized. Afterward, Marin worked with her physical therapist Beth in the afternoon and made the most of her 'snow day'.

We apologise for some profanity that's popped up in the guestbook as some hooligan has been posting under Matthew Beck's name and leaving crude messages. Be assured that it is not our good friend Matthew that's submitted any of these posts. Going forward we can only hope the foolishness stops, and there will be no more mention of it here.

Enjoy the remainder of the weekend, and GO Seahawks!
(Hey, the Niners aren't in it, so...)

Marin & Nancy,
Matt, Camie & Spidey on skis


Saturday, January 13, 2007 0:11 AM CST

We once again woke up to a winter wonderland. Now that we have the proper clothes, the snow isn't so terrible. Michael and Cami once again played in the snow all day and had a wonderful time. It's great how Cami's friends tolerate Michael being around them. It was nice for Marin and I that Cami's school was canceled again so Michael could hang out with her and have fun instead of going to the hospital with us. They found an old gumball machine in our garage filled with gumballs and took them in the back and shot them into the forest with a sling-shot.

Marin had day two of chemo which went very smoothly. The drive into the city was beautiful with all the trees covered with snow. During chemo, we watched "Groundhog Day." Bill Murray is one of the funniest guys around. Marin really enjoyed herself and laughed a lot. Not bad for having a needle poked in you with poison dripping into your vein! Lots of the hospital staff were wearing Seahawks shirts getting ready for the big game on Sunday.

When we came home Ashley came over. It's wonderful that she comes even when school is canceled. We had to miss some of the other therapist but Marin can't do everything. Ashley lives down the street from us so coming up and down "the hill" isn't an issue for her. We actually have this one street before pulling into our neighborhood that is littered with cars everytime it snows.

Marin has been thinking about all her old friends a lot lately and wonders how everyone is doing. Please feel free to call her anytime at our house or on Nancy's cel phone. We were hoping to make it to one of Collins Hill's swim meets (her old high school) but I don't know if it's going to work out. We want to make it back there for Marin to see everyone yet all the planning seems to overwhelm me. Please know that each and everyone of you back there are in our daily prayers.

Tomorrow Cami, Michael, and I are going skiing while Matt takes Marin to chemo. It should be a great day for everyone. Marin looks forward to not having me making her eat all the "stuff!"

So far, the new year's resolution of "getting ready" is still working. Marin's resolution is to qualify for a national swim meet for para-atheletes. What an amazing young lady my daughter is.

Hope everyone had a great day.

Here's another quote that reminds me so much of Marin:

There are those whose lives affect all others around them. Quietly touching one heart, who in turn, touches another. reaching out to ends further than they would ever know.

William Bradfiend

Sweet dreams,

Marin and nancy
Matt, Cami, and Michael


Friday, January 12, 2007 0:30 AM CST


Thursday was the charm as Marin's white cell cout soared and she was finally able to begin her next round of chemo only a week and a half late. Her levels were very strong this time around, a testament maybe to her focus on diet and rest this week. Once again, she came through strong and spirited as she dealt was able to produce a healthy vein and handled a long day at the hospital with her admirable good cheer. We'll spend the next four mornings taking treatment at Children's hospital.

We had a long discussion with her oncologist Dr. Geyer regarding her next course of treatment. Essentially, his feeling is we should consider simply taking a wait, watch, and see approach to her tumor over the next several months (with one more treatment beyond this one on the clinical trial schedule). At the same time, he didn't try to dissuade us from our own feeling that we should consider extending the treatment from the clinical trial for a few more months. There's no right or wrong in this unchartered area. We discussed alternate possibilities and learned of some other clinical trials that we will be looking in to. Most are offered through the Pediatric Brain Tumor Consortium, so if anybody out there has had any experience with some of these programs, please pass along any pertinent information.

The blanket of snow that bombarded us Wednesday night made Thursday's endeavors that much more difficult but thankfully the roads were cleared by the end of the evening. Camie and Mike took full advantage, sledding all day with all the other neighborhood kids out of school, and it looks like a similar agenda for Friday. Camie deserves the Gold Medal of the Day for handling Michael all day while Mom, Dad and Marin were at the hospital. And thanks to some good neighbors for overseeing the kids as well.

Moving forward & TGIF,

Marin, Nancy, Matt Camlyn & Spidey

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Wednesday, January 10, 2007 7:49 AM CST

Well, Got up this morning and there is a new blanket of snow on the ground. It looks like wet snow so getting around town looks pretty tricky.

We layed low yesterday trying to get our dear Marin's blood counts up to a level for chemo. We actually did sneek off to the pool for her to swim though. Marin and I talked about it and figured she had to shower anyway, and the chlorine should kill anything she may pick up on the way. I'm certainly glad we did now not knowing how those roads are going to be effected. Since we've only been here one year, it's amazing to me they don't have snow equipment to get the roads in shape for driving. We have been here one year and this is the fifth time we have had snow, etc. on the roads.

It's nice our home is cozy inside. As long as the power doensn't go out, we're good.

Hope everyone is having a good week. We appreicate your continued support and can't even begin to express how much we appreciate, as well as need it. Marin's strength and courage continues to inspire me to no end. If she can fight this hard, hold an exquisite attitude, and eat all that stuff, anyone of us can!!

I'm going to live today with Marin's spirit. Talk with you all tonight.

Fondly,

Marin and Mom
Matt, Cami, and Michael


Tuesday, January 9, 2007 9:18 AM CST


We're not having any luck in the blood count department. For the third time in a week, Marin's white cell count was not at the level required for her to begin her chemo treatment, so a good vein took another hit all for naught. In fact, Monday's level was lower than last Thursday's, which was perplexing to us because we'd been loading her up on all the good fruits and berries. Once again it was a disappointment, and after letting out a big scream in to a pillow, Marin got over it. We'll try again later this week, perhaps Thursday.

In the meantime, her therapy sessions and lessons with Ashley are keeping Marin very busy. She has quite a few homework responsibilites now and her hours are usually filled with some sort of task. Her reading remains a big hurdle as she simply can't configure the symbols quickly in her mind. She is able to read, just at a very slow pace, and many words take extraordinary concentration for her to cypher.

On the homefront, things are a little rough as we try to balance all of Marin's issues with the everyday life that Cami and Michael are entitled to with the weather sort of dragging everyone down. We're told another storm is on the way and no one's excited about that. We're doing the best we can and trying to keep a good attitude (but it's hard sometimes). Matt's saying: "The only thing we can truly control in our lives is our own attitude." Make it a good one.

Plowing through,

Marin, Nancy, Matt Camlyn & Spidey

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html



Monday, January 8, 2007 1:15 AM CST


With the weather outside still a bit frightful, we finished putting away all the holiday decorations this weekend. But there is one piece that will be staying up all year. The angel tree that was gifted to Marin by some of our wonderful neighbors with a dozen or more beautiful angel figurines given individually by various friends and acquaintances who all gave a little of their spirit to Marin. It's a beautiful daily reminder of the fact that we're not alone in this struggle, and we feel this in our hearts.

Sunday we enjoyed church in the morning where several friendly faces greeted us and asked Marin how she's doing. She certainly is making progress, as we are reminded when people who haven't seen her in quite some time continue to comment on how well she looks. The same comments were made when we went swimming Sunday afternoon with the Shadow Seals para athlete team. Marin worked hard in the pool with the help of another athlete Jason who swam in the para Olympics in Athens and is going to train at the US Olympic training center in Colorado springs. Many of the parents on hand mentioned how well Marin looked compared to the last time they were together a couple of months ago. She'll continue to train with coach Karen, and work with the seals every few weeks with the aim of swimming in some para athlete competition this spring.

In the meantime, it's another big Monday with the blood test scheduled in the morning, and if all the levels are good, she'll begin a five day treatment of chemo. We're praying for her white blood cell count to reach the minimum level.

It was nice reading the guestbook entries this weekend (as it always is) especially from out neighbors and friends in Georgia as the swim season gets stroking. We were happy to hear how the CH Eagles were doing. Keep the updates coming!

Sleeting in Seattle,


Marin, Nancy, Matt Camlyn & Spidey

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Sunday, January 7, 2007 2:52 AM CST

Good evening, and morning. Following our frustrating day yesterday, Marin had a great day today. Friday night was hard because we missed the swim banquet due to getting the time wrong and missing it all together. After missing the last swim meet due to getting lost, that was the icing on the cake for blowing it!

Marin planned to rest and relax today without Me, Cami, and Michael around. She did get to relax all day but we were around bugging her. The mountain we were going to go skiing at was closed due to a power outage. It's amazing but the power goes out here all the time. I know when I heard about Seattle, you always hear about the rain but no one ever talks about the power thing. Perhaps it's just a fluke but I'm beginning to think not. Also, when several people own very expensive generators, you begin to see why.

Marin's OT Beth came this morning and is getting Marin more set up to function around the house with only one hand. She has ordered several gadgets for her including a one-handed rocker knife for cutting vegtables, a nail clipper, veggie brush, cutting board with spikes sticking out so she can put what she's cutting on them to hold the veggie, fruit, etc., in place. When you are presented with only having the use of one hand after having two, you realize how dependent you are with two. Marin is adapting pretty well yet there are so many things that I do for her without even thinking that she would like to try to do it. We are still praying very, very, very hard for a miracle and the use of that arm again but are also moving towards her living in a one-handed world.

Perhaps this cold, cold weather is good for keeping her inside and resting. I think she'd rather be in a warm climate though the way she sat around and drew several pictures today of the beach, palm trees, and swimming.

Since we're living here in Seattle now, the victorious Seahawks must be mentioned. Those of you who got to catch the game really saw some great football today. I've been watching the UCLA games this season (because Matt and I both went to school there) and they almost always fell apart the last few minutes of the game. It was nice to have a team you're rooting for pull it off in the end (21-20) this time! Go Seahawks!

Have a restful Sunday and thank God for all the blessings we have, our gift of life, and how we're appreciating each day of that life. Talk with you all tomorrow.

Most Fondly,
Marin
Nancy, Matt, Cami, and, Michael


Saturday, January 6, 2007 1:40 AM CST


Well, it was a frustrating Friday as we spent a couple hours in the hospital only to learn that Marin wouldn't be able to start her treatment after all. It was crowded in the hem/onc clinic so nothing was moving along quickly. Then it took two stabs at her left arm to find a gusher and by the time the blood test came back, we'd spent most of the morning in the hospital. But Marin's white cell count wasn't quite high enough. The clinical trial has strict guidlines, so the little bit she was under meant we had to go home and wait out the weekend. Thanks to all who pray each time we go through this. We're certain they prayers help because her counts are on the rise... we just need a little more boost. Pleas keep doing your part, as will we, and Marin will be eating a lot more blackberries, blueberries, and cherries over the weekend to ensure we can go forward on Monday.

In the meantime, she still did her physical therapy this morning and worked on all her homework later. She enjoyed a good sushi lunch and then napped a long time in the afternoon. Marin's working hard on her knitting again and looking forward to a restful weekend. Not so for Nancy, Cami & Mike who are going to hit the ski slopes Saturday... cowabunga!! Have a great weekend everybody.

Chillin' in Seattle,

Marin & Nancy,
Matt, Camlyn, & Michael


Friday, January 5, 2007 1:11 AM CST


Thursday was a productive day for Marin, even as she conserves herself for tomorrow's blood test and hopefully the beginning of her chemo treatment. She started the day with a batch of blackberries (good anti-oxidant, white cell booster) as she met with her speech therapist first thing in the morning. Jessie is continually challenging Marin with increasingly complex tasks and exercises in order to stimulate her mind as well as her speech. She really does respond to the challenges and even though she still calls Dad 'Mom' most of the time, we know what she means.

After speech therapy and a bigger breakfast, she hit the pool for a good workout with coach Karen, followed by a nice lunch with Karen and her father at the BAC grill. Karen's Dad is a 20 year cancer survivor who's followed a similar path as Marin in that he's on a strict macrobiotic diet and uses supplements, holistic medicines and any other affective remedies to fight his condition and he's been doing it very well for a long time now. He also has the same type of indominable spirit that Marin has and it shows. His message was basicly that the best defense is an aggressive attitude and that of all the factors he employs to fight cancer, he believes the proper diet is the key. Something for all of us to think about.

After a busy afternoon, Marin did rest for a while but after dinner she went right back her pet knitting project right now. With Michael's birthday coming up (Feb. 5th), she's working on a knit cap in Spiderman colors that looks great(and no, we're not concerned about giving away his surprise here because as much as Mike will tell you he can, he really can't read yet... but don't tell him).

Prayers, please, for tomorrow's blood test,

Marin & Nancy,
Matt, Camlyn & Spidey


Thursday, January 4, 2007 0:42 AM CST

Today was a restful day for Marin. Knowing that we're trying to get her white blood cell count up puts us in this "zen" mode. Anyway, we continued on with all the therapy and swimming but it seemed much more relaxing.

Marin started with physical therapy and then speech. From there we went to the BAC to swim. The pool was warm today which was welcomed by Marin with a big smile. I sat and watched her for a moment when she started in on her set that Coach Karen gave her and she seemed so happy. Gliding through the water, I'm sure she feels so much more connected to her old body than out of the water. She moves so effortlessly back and forth. At one point through her workout I was next to her in the pool with Michael and I heard her humming. She truely is happy for all that she has and will become.

After swimming we stopped by at her favority lunch place, Coho's and ordered a Salmon Burger to go. She had it gone by the time we arrived home and she came into the house and took a long nap before Ashley came at 5:30p.m. It was great to see Ashley again after the 1 1/2 week break. Ashley said Marin was naming thinks pretty good today and was able to tell her in explicit detail about our adventure in California. Ashley arrived with four big bags of yarn for Marin today as well! She has a friend, Gavin, whose family has a yarn business and sells it to retail stores. He chose some beautiful yarns to send with Ashley so Marin can start knitting again. Blessings again on my little Marin.

Tonight as Marin and Cami were getting ready for bed I could hear them arguing about all the various things they use on their faces and how they don't want to share them. I saw Cami walk into her room with all her stuff and hide it. (This is very typical for Cami!) A little while later, I saw Marin going back and forth from the bathroom to her bedroom hiding all the stuff she uses for her face. I couldn't help but laugh and laugh. First off, it made me think of my sister and me, fighting about the very same thing! I also couldn't help but be overwhelmed with joy that Marin is getting back into being a regular teenager. Just a few months back, she wouldn't have noticed Cami using her stuff let alone care. Life is good, isn't it?!

I hope everyone is still plugging away at those New Year's Resolutions. I know I am and have successfully gotten ready three days in a row now!

One last side note: Today we added three fish to our household family. I'll let you know if they make it through the night. We bought a little 2 gallon tank to keep them in. I guess they're Michael's, or so he says. Now we have a creature in almost every room staring at us through their cage, gated area, or tank. Lots of living going on in our house!!!

Happy Thursday!

Swim on, Marin and Nancy
Matt, Cami, and Michael


Wednesday, January 3, 2007 0:20 AM CST

Wow! 75 degrees and sunny! Well, that's what I'm always hoping for when I wake up daily. Instead we got 45 and rainy. That's o.k. though because we spent most of the day in the hospital and would have had a harder time if the weather was great.

First hospital news, the MRI look "stable." We compared it to the scan from a year ago and there is so much less tumor. Since that time the scans continue to read "stable." I think they say that until the cancer is completely gone, which we won't know for a long time. There is still about an inch of white mass on the scan which could be cancer, could be scaring from surgery or radiation. Dr. Geyer said there is really no way to know for sure. He agreed to allow one more treatment after this month's treatment. He said he will write the head doc for the trial and see if anyone has continued on longer than one year or if that is a possibility. Dr. Geyer feels that if the chemo trial is working, further treatments aren't necessary. I am nervous about that option. It seems to me that we should continue the fight until we know for sure it's gone. Right now, there is a lot of "stuff" going on in her brain. There is the white pieces that are still there, and there is this cyst that is filling up the space where the partial tumor was removed.

Marin's doc did use the word "hopeful" several times today. He said he is "very hopeful that the cancer cells are gone and that is all just battle wounds left in her brain." I am definately on the same thought being very hopeful that this is the case. The fact that this is the the first tumor she has had could mean that it is going away. Marin's doc said if the tumor had been removed or gone away with the treatments, then came back a few years down the road, the hope would not be there like this. That's the problem with cancer. Right now, we have two more treatments for sure. After that I'm not sure of the course of action to take. I will be doing a lot of research, praying, and asking for suggestions to arrive at our decision when the time comes.

I feel so thankful that Marin is happy to continue to fight so hard. She doesn't look sick at all! I was watching her today and she is still such the same person she was when she was healthy and strong. She had herself dressed so cute in some of her new Christmas clothes. Even though her outings are mainly to hospitals, etc., she makes the most of them and takes pride in herself and her appearance. Her sense of humor, her smile, and her concern about others continues to inspire me. Her number one wish continues to be the use of her left side as I wish that every time a wishing opportunity arises. Every birthday candle I blew out a few days ago was for Marin's recovery of her right side, as well as getting rid of that nasty cancer.

You know what she wanted for Christmas, her New Year's resolution, every coin tossed into a fountain. I hope all that wishing and praying make's her miracle happen. What she doesn't realize is that she already is a miracle. She has inspired more people in her 16 years than most have in a long lifetime. Thank you to each and every person for letting her inspire you.

Anyway, back to the hospital day. After our discussion about the trial, we found out that Marin's counts were too low for getting her round of chemo started today. We are going back on Friday to try again. In the meantime, we will rest, swim, and eat lots of berries and brocoli. Eat those "B" foods for better health!

I have succeeded accomplishing my New Year's resolution for two days now! It was, as ridiculous as it sounds, to get "ready" every morning. I get up and run, come home and start in on the day and don't get around to showering until night time. So watch out, I'm going to be showered and ready now! I also pray for peace in our household as Matt and I are pretty run down and are at eachother's throats a lot. My resolution is try to ease that tention in our home. That's getting pretty personal but, heck, I tend to wear my heart on my sleeve and have been pretty personal to all of you several times.

I must say that being in So. Cal. made me home sick. I still can't believe that I had to leave there. Those of you who know me, know I am still a California girl no matter where I am. The funny thing is, although Marin, Cami, and Michael have never lived there, they to have that spirit that I have. Seeing Cami surfing the other day reminded me so much of my youth and how glorious it was. Marin is so happy when she is by the coast. She tells me, almost everyday, that she wants to live where it's warm, there's a beach, and she can have a palm tree in the yard. It's fun to dream.

I hope this entry finds you all feeling thankful, peaceful, and HOPEFUL in this new year. Thank you for all the support. We could never, ever, ever do this without you. Please know that.

Fondly,

Marin and Nancy
Matt, Cami, and Michael


Tuesday, January 2, 2007 1:00 AM CST


Happy New Year everyone,

We rang it in with a low-key approach but in New York style... that means we watched the Times Square festivities on CNN, 9pm here in the west, and called it a celebration. Actually we had a very nice dinner and good times with Nancy's good friend and roomate from college Marnie and her family and other friends. Marnie made a wonderful dinner and the kids all played together and we all sang Happy Birthday to Nancy over a homemade birthday cake (Matt's specialty). Marin enjoyed her evening (not too late) and hung somewhere between the adults and the kids (she did get a seat at the big peoples table, so I guess she's a grown up now!). Some people just never seem to graduate from the kids table, but Marin's doing a fine job of it. She's very comfortable in these social settings and she's doing her best to make conversation and participate. It's nice to see her at ease in most types of gatherings.

Marin said she had a great time visiting Katrina and the cousins down in SoCal. The trip was a lot of fun as usual and the day on the beach did wonders for her soul. The trip home was ok with a one hour delay, but those that needed a nap had time to snooze before the new year's dinner. New Year's day we took in a movie and we all really enjoyed "Night in the Musem". Good family fare, a light comedy with Ben Stiller (always good) plus Owen Wilson and Robin Williams in lesser roles. Now it's back to reality after Chrismas break.

Tuesday morning Marin goes in for an MRI and her next round of chemotherapy. We're crossing our fingers that the treend will continue to show improvement and her white cell count is high enough to begin treatment. We're also looking at what's beyond this particular trial. We'll be consulting tomorrow to see if we extend this treatment longer or if another trial might be a good fit. We feel we've had good success doing this,the cancer does seem to be on the run, but it's still there and we want to help her stamp it out. We'll see. All your prayers continue to give us strength. God bless everyone and happy new year.

Getting stronger in '07,

Marin, Nancy, Matt Camlyn & Spidey

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Saturday, December 30, 2006 11:38 PM CST


HAPPY BIRTHDAY NANCY!!

The blonde and her brood spent Nancy's birthday doing exactly what she wanted to do... going to the beach! It's the one place on the planet that she always feels wonderful and we're so glad she was able to spend her birthday doing something she loves. The gang drove down to Orange County to Uncle Hal's neck of the woods. Once again all the cousins were together and having a great time in the sand and in the water. The standout of the afternoon was Cami who hit the waves with her cousins Gavin and Trevor and showed everyone what a great beginner surfer is capable of. She got up on her board and rode the waves in several times and didn't want to stop. She spent hours in the water working on her moves and declared it was the funnest thing she's ever tried. Looks like we have a little surfer girl on our hands (cue the Beach Boys music).

Last night the gang had a birthday celebration dinner at a Japanese restaurant where the chef cooks at your table. A wonderful treat for Marin, who's restricted diet can get very monotonous, so of course she was thrilled to have a wonderful meal like this. We have to thank Aunt Linda and Uncle Bruce and Grandma Shirley for hosting everyone this week and making the Christmas break so fun and memorable for all. It'll be nice to have everyone home again, but it's tough leaving the sunshine.

Have a safe, healthy and Happy New Year!!

Marin, Nancy, Matt, Cami & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Friday, December 29, 2006 1:18 PM CST


Thursday's adventure was every bit as fun as you would expect with a horde of cousins visiting Disneyland together. Marin felt good and ended up having a wonderful time despite the massive crowds. The day started out a little rough as Disneyland was actually sold out by the time everyone arrived, but thanks to the ultra-promptness of Uncle Ron the day was saved. Because he had arrived much earlier with Landon and Toby, he was already inthe park when everyone else arrived. Aunt Linda concocted a plan to work the system (she's a long-time Disney employee). She bought tickets to the 'California Adventure' park and then used those to work everyone in to the Magic Kingdom by pleading with the gate-keepers to allow the group to go in with their other cousins who were already inside. Skeptical, the supervisor made her contact Uncle Ron and he and the boys had to meet the group out front. Sure enough, it worked so Marin and the gang were all able to enjoy Disney on a sold-out Thursday. Micheal of course had a great time and just had to tag along with the older kids on the wild rides. An exhausting day, to be sure, but one filled with great holiday memories.

Back in Seattle it was nice to see Collins Hill High (Marin's HS in GA) on the front page of the sports section for the past couple days. The Eagles highly ranked girls basketball team cme in and won a prestigious tournament with their big star Maya Moore earning the MVP. Way to go Eagles!! On a similar line, our friend, former neighbor, and Marin's teammate on the swim team at Collins Hill and Swim Atlanta Erin Dobeck recently was honored by the Atlanta Journal-Constitution. Another friend sent us the clipping and Marin was so touched when Erin listed as her favorite swimmer 'Marin Morrison'. This brought a tear to her eye and she immediately taped the item to our refrigerator. It was a very nice gesture.

Another little friend needs some ectra support right now. Catie is a 4-year old beauty who we came to know well while living in the Ronald McDonald house in Atlanta. She's been battling an insidious brain cancer longer than Marin has and she continues to struggle bravely. Please send up some strong prayers for Catie and her family this week as they embark on a new chemotherapy treatment. You can visit her site at http://www.caringbridge.org/ga/catie/

Look forward to a healthy and happy new year,

Marin, Nancy, Matt, Cami & Michael
In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Thursday, December 28, 2006 3:02 AM CST


Warmth is a wonderful feeling this time of year. And it feels even better when we hear that a blanket of snow was draped over our house during the night. We're enjoying California for the week, visiting family in SoCal until new year's eve. Wenesday we pampered ourselves with Aunt Linda & Gramma Shirley. After lunch, all the girls sat down for a manicure and it was a great time. In the evening we all went out to see a local production of 'Scrooge' and everyone enjoyed it, especially the children. Mike is having a great time running with his cousins Timmy and the older twins.

Thursday it gets even better as the whole gang is headed for Disneyland for the day. It's Marin's favorite place and she's hoping to ride all the fun exhibits. We'll see how she feels but we know everyone's in for a great time.
We hope everyone else is enjoying your Christmas vacation as well.

Fun under the sun,

Marin & Nancy,
Camlyn, Spidey & Matt

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Wednesday, December 27, 2006 0:08 AM CST


With the hustle of the holidy now in the rear-view, it's time to enjoy a little down-time... if you can consider traveling relaxing. The whole gang (minus Dad, who's working) flew down to southern California to visit with Gramma Shirley and the cousins for the next several days. The sunshine in SoCal is like a tonic coming from the cold and wet Northwest. Marin spent most of the morning sunning outside, drinking in the rays that she enjoys so much. There's few simple pleasures like sunshine that can do as much for a person, and Marin intends to take full advantage this week.

Having all the cousins together to enjoy the Christmas season is very special. Since they were babies, Marin and Katrina have had a special bond and they'll have the chance to spend some good time together this week. Michael is in little-dude nirvana hanging with Timmy and the older twins; playing basketball, baseball, and bouncing on the trampoline. Cami's so well-rounded she can swing between hanging with the older crowd and rounding up the little kids. Everyone's enjoying being together.

Tonight everyone went out to the movies together and saw "We Are Marshall". It's a great football movie with Matthew McGounaghey (Marin's favorite) based on a true story. A real inspirational story, like Marin's, and everyone really enjoyed it. It's nice being with family this week... we hope you all are enjoying yours.

Working on a tan,

Marin & Nancy,
Camlyn, Mike, & Matt


In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Monday, December 25, 2006 2:28 AM CST

Merry, Merry, Merry Christmas!! We went to church tonight and sang a hour's worth of Christmas Carols. The kids hold such excitement, specially Spidey. He asked Santa for "Heeleys", biking gloves, and a scarf. I think he's been a pretty good boy and Santa will deliver. Cami always has about 200 items on her list. Her first thing on every Christmas List since she's been 2 year old has been a motor home. Unfortunately, Santa hasn't delivered that one. She always seems to come out happy and full of joy.

Marin keeps asking for two things and two things only. She asked for the same thing for her birthday. Firstly, she wants her arm and leg to work again. (Michael told her Santa doesn't bring new arms and legs). The second thing, of course, is for the cancer to be gone!! Everytime we have this discussion, she has that same beautiful smile on as she always does. She continues to reassure me that it will happen. Her calming sense of spirit is so comforting, so reassuring, that we all can only believe when, not "if."

Today in Seattle it has been cold and raining all day. The children were praying for snow to complete the magical Christmas day. The wind was picking up and there was a little anxiety about to power going out again but fortunately, it didn't happen. After spending a morning of the whole family hanging out together, we went and visited a few neighbors then went to our friends and neighbor's house. Rob and Tammy live across the street and have a son, Payton, who's 4 just like Michael. They are a lot alike with lots of energy, the love of sports, and very competitive. It's wonderful that they live so close. We watched the Seahawk's game which ended in dissapointment but it was really fun to watch.

After the game, we headed to Church which I mentioned about already. I know I have expressed our gratitude and thanks thousands of times but I must express once more how humbling the generosity of others has been. I think I teared up today over 20 times when so many people did such unexpected gestures of kindness.

Thank you, thank you, thank you! I know I need to get to bed now. Santa only comes when everyone in the house is asleep. I was informed by Cami that there will be no sleeping in tomorrow. I guess I will go try to sleep and have "visions of sugar plums dancing in my head." I know for sure that God has blessed us with many, many angels, for that is what each one of you are!

MERRY CHRISTMAS!!

Marin Morrison
along with Mom, Matt, Cami, and Michael


P.S. I wanted to put a Christmas card on the home page but I can't remember how to change the photo. That's my New Year's resolution. To learn how to do all the photo stuff on the computer. Until then, we're stuck with the great pyramids. Sweet dreams.


Sunday, December 24, 2006 1:38 AM CST


Merry Christmas everyone!!

On the eve of Christmas Eve, we enjoyed a fun adventure in downtown Seattle with Nancy's college friend Marnie and her two lovely little girls. We enjoyed the holiday atmosphere downtown first by going down to the Sheraton Hotel and downtown mall complex where there was an incredible exhibit of gingerbread houses. They were 6-foot sized displays with all sorts of creative designs sponsored by different companies downtown and very fun to explore. There was one that was a replica of Pike's Place Market that was impressive right down to the wall of gum!

Afterward it was time for lunch so we enjoyed a great meal at a nice restaurant, then went and did a little last minute Christmas shopping, or splurging, depending on how you look at it. The girls got matching rings as a nice memory of a fun afternoon together.

Reality kicked in when we returned home later as Christmas Eve and all that goes with it is upon us. In addition to the feasting and presents, we'er getting ready to visit family in California so there's shopping and the travel stress to be dealt with. Lots to do while celebrating the blessed day. We're looking forward to a nice Christmas at home before hitting the road. We're so thankful for so many blessings this year. We especially appreciate all our wonderful friends near and far who've inspired us throughout this trying year. Have a wonderful Christmas everyone!

Joyful and triumphant,

Marin & Nancy,
Matt, Camlyn & Michael


Saturday, December 23, 2006 1:50 AM CST

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html

Christmas 'vacation' to some is a good reason to keep working hard for Marin. In the same way way most of us need a little relaxation time, Marin needs stimulation. To that end, she continues with her hard work during the 'break' and she certainly has help along the way. Today she went swimming with coach Karen again and made teh most of her time in the pool. Working out is so important for her and today was a bit of a challenge because she was feeling kind of dizzy early in the day after giving blood. But she gathered up and went for it and felt much better for having done an hour in the pool. Once again, Camie was an unsung hero in helping with the oversight of one rambunctious Michael. Later, Marin worked with Ashley who offers her time even as school is officially out on the break, and in the evening, Mom and the kids enjoyed a wonderful performance downtown with Ashley as her friend Fred played Scrooge in a hilarious improv version of "A Christmas Carol". Good times!!

As the holiday weekend falls, we reflect on all that's occured over the past year and all the people, near and far, who've made such a wonderful impact on our lives. All we can say is that each of you has touched our hearts and we feel a special closeness with everyone this holiday season. At this time last year we felt we might be spending our last Christmas with Marin and now we feel the future is unlimited. The power of love and prayer has certainly come through for us this year.

Merry Christmas,

Marin, Nancy, Matt, Camlyn & Mike


Thursday, December 21, 2006 1:23 AM CST

Yea, We got our swimming in today. It still is crazy here and around Seattle with so many people still without power,etc. It seems like things have been kind of crazy since Thanksgiving. Right after Thanksgiving we had that big snow storm and it brought on the Christmas excitement. The excitement hasn't died down yet. Michael said to me the other day, "Mom, is it still Christmas!" I had to then explain to him that Christmas hasn't even came yet!

Marin worked with her speech teacher Jessie today and continues to make very noticeable improvements. Her sentences are coming out much more freely. She still struggles on words and gets mixed up on things but a person can have a sudo conversation with her now. Her memory continues to improve as well and she is constanty saying, "Mom, remember when..." I'm excited each and every day she gets up to see what new task or idea she is going to grasp. After therapy we headed to the pool so she could swim with Coach Karen. As I have said so many times before, she has been wonderful for Marin and plays such an important part in her life. We then came home and was greated by lovely Ashley who also keeps Marin on her toes and makes her strive to improve. We were blessed with Cami's presence today at the pool since she is out for Christmas break. It's nice to have her around since she is a HUGE help with Michael who sometimes can be a little bit of a handful.

Marin has started knitting again these last few days and completed a new hat this evening. So many people have asked her if she would sell them. She is thinking that she would like to do that now.

We were informed of some very tragic news yesterday and those of you in the swimming community if you could keep the family in your prayers. A young lady by the name of Madeline Brown passed away yesterday due to complications from having a seisure in the pool. She used to swim for Swim Atlanta and was now a swimmer for Emory in Georgia. Apparently she had a seisure during practice and went under the water for around 7 minutes. I can only imagine the pain they are experiencing and hope faith and love can pull them through this time.

I remember a saying that comes to mind:

"Stength has a million faces."
Let's all let our strength shine.

Sleepy,

Nancy
Marin
matt, cami, and michael


Wednesday, December 20, 2006 1:32 AM CST

Hi. I think maybe all the excitement yesterday left Marin a little tired. She started out with speech this morning, followed by Ashley and our intent was to head to the pool after that. Unfortuneately, we didn't make it there for she started getting dizzy at the end of her morning session. I guess that's o.k. because she got in a good nap before her OT from the insurance came.

Marin has always been the kind of person who needs a lot of sleep. Since the tumor, etc., she requires much more. If we don't schedule a nap into her day, she doesn't do well. It's kind of like having a little kid around. I'm hoping we make it swimming tomorrow because she's always so happy and she functions so much better on days she gets in the pool.

Several areas here are still without power and now people are loosing their hot water. I feel fortunately that we were only out for four days and have a wonderful, warm house now. We have offered our home up to people who are having these hardships but haven't had any takers yet. When you experience something as this with the power out for so long, it almost becomes a testimony that you can make it through it. I gave in early! The weather here has been soo cold I can't believe how strong so many people are.

Marin did enjoy herself this afternoon and went over to her friend Naiomi's house to watch a movie. They really enjoy hanging out together and I should make more of an effort to make that happen for her.

Marin is still receiving angels daily which are so beautiful. Walking by the tree several times each day reminds us how lucky we are to have so many angels looking over us.

I can't believe that Christmas is in 6 days. I haven't gotten ready. This is the second year in a row I have neglected to do Christmas cards. It is wearing on me yet I keep not doing them. I hope everyone that reads this, and celebrates Christmas, know that we wish everyone a very, merry Christmas. God has been watching over my little Marin and has allowed us to all appreciate her calming, determined, and positive spirit. The celebration of Christ's birth reminds me daily that miracles happen all the time. The gift of life is the greatest present we receive and to cherish each and every moment is really the answer to true success and happiness.

We love hearing from you through this holiday season and thank you so much for the uplifting messages. I still check your entries dozens of times each day and read them to Marin constantly.

Hope everyone is having a good night sleep and have a wonderful day tomorrow.

The Morrison gang,
Marin, Nancy, Matt, Camlyn, and Michael


Tuesday, December 19, 2006 4:23 AM CST

I have always thought Mondays were great days. Even way back when when I was Marin's age, I loved Mondays. You were coming off the weekend, getting to get back to school and see what everyone was up to over the last few days. As a grown-up, it's almost as if it's New Years every Monday. I make a long list of things to do for the week, vow to make this week the best week ever, and really accomplish a lot. Accomplishing a lot makes it a great day for me.

Anyway, Marin had a fabulous, very accomplishing Monday. Today she had her big shoot for the Make-a-Wish Annual report. Our whole family traveled downtown to a photo studio and Marin was given the royal treatment. It was as if she was a professional model. They had a table with fresh fruit, muffins, coffee, juice, etc. There were several graphic designers there, the main photographer, other photographers, a make-up artist, and many others. The big white sheet was drawn and Marin took to the stage. It's amazing how photogetic Marin has become. She was so comfortable in front of the camera as they blasted out hundreds of shots. They did street clothes and then had her change into her bathing suit and did several shots in her suit. In some of the shots she sported several of her medals from Georgia as well as her Collins Hill swim cap. We even managed to squeeze in a couple of family shots with the whole motley crew. On our way out, Marin expressed how much for that was and she think she would like to be a model now!

Cami was watching in amazement and expressed a little discern later in the day to me. She said she's the one who has always wanted to be the model and I haven't persued that for her. I know she's feeling a little slighted these days and lack of activities isn't good for her. I need to get on the ball and get her involved in some acting classes, sports, etc. I have let myself feel completely overwhelmed and don't schedule anything anymore. All Marin's things are done by others whereas anything that Cami does is up to me. Those of you who pray, my prayer request is that I give more attention to my wonderful baby girl Cami and get her involved with all the things she wants to do and be. She's an unbelieveable person, friend, daughter, and sister and it brings me a lot of pain to see her struggling for attention. Michael always demands it so that is fine.

After the shoot we ate at a wonderful downtown water front restaurant in Seattle and really enjoyed that. When we arrived home in the mid-afternoon, Ashley the teacher was waiting for Marin to enhance her mind. It's so important that Marin gets all her time with Ashley, and various therapist to help her continue in her growth. I frustrate the heck out of her. She's always saying "mom" in less than loving terms. Could you blame her!? Having to hang out with me and being sixteen! When she's moving through her day, I try to make her days as productive as possible, just as mine. I know a lot of people out there aren't like that, including Marin, but she's once again rose to the occation to please dear old mom. After Ashley her PT came and got a little more movement out of her knee which is a huge blessing. More movement in the knee, hamstring, and gluts will help her get a normal gate back. We pray for that on a daily basis as well.

I through together a not very exciting dinner with pasta, carrots and avacados. Amazingly, everyone at it and no one complained about it.

A local brownie troup came to visit Marin this evening. They were dressed as beautiful little carolers (7 years old) and sang their little hearts out to Marin. They each had made her a special Angel to adorn her Angel Tree and made her a special t-shirt with all their hand prints. It was a special evening for all involved and I saw the inspiration Marin was giving to those precious little ladies.

I did 7 loads of laundry in our warm, hot water, house today. It actually brought joy to be able to do mom stuff in my mom surroundings. Thank heven for little things. Christmas days are approaching fast. Make sure you are eating your daily chocolate out of your chocolate advent calendar. Michael wouldn't miss a morsel of chocolate to save his live!

Thanks soooooooooooooooo much for the continued support my old friends, new friends, and friends to be. I feel I have let me whole self worth and identity fade away. I don't hang my clothes in my closet, hardly fix myself anymore, and feel like I'm gaing weight. I pull away from friends I want and need so badly thinking I'm so not up to par to be a friend for them. The sad thing about that is I really do need a normal and I can life out side of this home. I need to go out, teach some classes, train some people, get coffee, lunch, wine, etc. I allow myself to justify why I'm not out there doing fun things and getting to know some girl friends. I take myself though this emotional rollercoaster about it and more than half the time (which isn't very often) end up not going, doing, etc.
I guess this is my prayer request number 2.

Marin is happily sound asleep, living in your giving, warm, and loving atmosphere. She feels your good wishes everyday and loves it when I reed the entries from grandparents, friends, and those of you she's inspiring. Thanks from the bottom of our hearts for the outpoaring of love. This is our persuit of happiness (which by the way is a great movie we thought.) How much he loves his little boy is so deep. I know the feeling.

Better get some sleep if I'm going to make my 7:00a.m. run.

Sleepalittle in Seattle,

Nancy for Marin
Marin, Michael, Matt, Camlyn


Monday, December 18, 2006 9:35 AM CST


AT LAST! The lights are back in in our area and more importantly THE HEAT!! Yeah, we're back up & running and now of course several days behind! It's not the type of hurdle you want to deal with going in to Christmas. This weekend was an experience we hope none of you has to go through, but at the same time it was an adventure. We were without power for 72-hours, and while it may not sound like a very long time, it gets worse with each passing hour, especially inthe cold of winter. We're among the last to get the power back, but there are others who are still suffering and our prayers go out to them.

Over the weekend Nancy & the children were taken in by the parents of our neighbors in an area of town that had the power back on quickly. Matt worked and cared for the animals by taking him to his office. The kindness of our friends Tammi & Rob and Rob's parents was incredible as everyone shared on the inconvenience with good cheer. Once again it's an amazing example of the goodness in people we've witnessed through adversity.

We were so touched to read the entries from Marin's Collins Hill teammates and friends from the old neighborhood. Thanks, Eagles, for keeping Marin in your hearts and wearing the M on your shoulders. She gets a big smile and sometimes a tear in her eye when she hears about how all her swim buds are doing in GA.

We were also thrilled over the weekend to welcome a new nephew and cousin to our family. Uncle Ron and Aunt Terrell delivered a baby boy, Caleb Daniel Scott. We're so excited to meet him very soon. Congratulations Terrell & Ron, Landon and Tobias.

Happy to be home,

Marin & Nancy,
Matt, Camlyn & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Saturday, December 16, 2006 4:46 PM CST


Sorry to have been out of touch for the last few days, but we've been going through quite an adventure here in the Northwest. For anyone who watched the 49ers beat the Seahawks here on Thursday night, you have an idea what we're talking about. The heavy rain and wind you saw during the game became a lot worse as the evening wore on. By 9 o'clock that evening, all the power was out in most of greater Seattle, including our house in Sammamish, and as I write this Saturday afternoon from my work computer, WE ARE STILL WITHOUT POWER at home. We're going on three nights without electricity and our house is too cold to stay in. Right now we're praying for a break and looking to hook up with friends somewhere who may now have power. It wasn't too bad Thursday night when we anticipated the black-out would be over any hour. Last night was uncomfortable but we made the most of it, with Camie & her friend Natalie hunkered down in the family room in front of the fire and they rest of us wearing lots of layers under lots of blankets. With our food supply beginning to spoil in the refrigerator and gas stations in the area not able to service customers, having to figure out a plan as it could be days before the lights come back on where we are. Lots of areas have been getting the power back, but so far not where we are on the east side. Schools were out Friday, so Christmas break came early for the kids. Regardless of the inconvenience, we've managed to have some fun, old school. Reading books by candle light, checkers, etc. but trying to entertain a 4-year old can be exhausting.

We did have a wonderful experience this morning when our neighbor Yvette and her family and other friends turned out at our house to have Marin draw the winning ticket for the raffle fund-raiser they staged last weekend for her benefit. Marin was so happy and proud to do the honors... Michael was bummed he didn't win; but we all won as the effort raised A LOT of money for Marin's medical fund. Thank you so much Yvette, Steve, Curt, etc...!!

Chillin' out with warm hearts,

Marin & Nancy,
Matt, Camlyn & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Thursday, December 14, 2006 1:20 AM CST


We were thrilled on Tuesday to see Marin featured on a 'good news' website DarynKagan.com. Her story was told very nicely with the help of our friend Fred who also happens to be Ashley's (Marin's teacher) special guy. You can see the story at:

http://darynkagan.com/sports/stories/sp_061212_superteenswimmer.html

Marin was thrilled to see this story, especially since Camie, Michael and Ashley all make nice cameos in the video. We're all so proud that Marin's story having a positive impact on people. It's also noteworthy that Matt used to work with Daryn kagan when they were both at CNN, but we don't know if she made the connection between Marin and Matt, her former worker. Fred did such a nice job supplying the content to the web site and we all really appreciate his effort.

Angels have continued to appear on Marin's 'Angel tree' and it's been a wonderful surprise each day. We're so thankful for the wonderful friends who've supported us emotionally through this holiday season.

We woke up this morning to a terrific article on the front page of the P-I sports section with an amazing photograph of Arianna Kukors of King aquatics. She visited Marin last spring along with her mother and sister and have been so nice in extending a friendly welcome from the Seattle swim community when we first moved here. Arianna is one of the rising US swim stars and she's such a good person to be able to root for. The article in the paper was very insightful in pointing out that one of the greatest high school athletes in the area isn't able to make her mark at this level because of practice restrictions and her commitment to national and world competition. We're all rooting for you, Arianna!

Still swimming strong,

Marin & Nancy,
Matt, Camlyn & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Tuesday, December 12, 2006 0:29 AM CST


It's nice to get back to a more typical week as we did this Monday with Marin. Coming off a chemo week, everything is seems so much easier to handle even as we had a full day. Beginning with her speech therapy, where Marin is making strides, it's been rewarding to see how well she's responding to treatment. Her therapist Jessie continues to challenge her and Marin responds with every competitive fiber that she has. Parental stimulation is one thing, but she has more inside her than any of us can imagine.

Marin went swmming today with coach Karen and while her session was cut short by her schedule, Marin used every minute to her advantage. She flat-out swam hard! It was great to see her feeling so good two days afer chemotherapy! She's inspired by her own recovery. After swimming, two hours of school with Ashley was cake... and she continues to show imporvement in almost every area. Maybe the most challenging effort of her entire day was dealing with the incredibly energetic four-year-old in the household...Michael has been been both a blessing and a nuisance in Marin's recovery; he's too rambunctous but physically, mentally, and emotionally challenging and witty at the same time. He makes Marin laugh but drives her to her wits end; we'd rather have him than not, but sometimes it's a toss-up.

Monday was a great start, we're looking forward to a better and better week. The Angels that keep arriving continue to inspire us,

Marin & Nancy,
Matt, Camlyn & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Monday, December 11, 2006 0:02 AM CST


The Christmas spirit really hit home this weekend. One again we were overwhelmed by the kindness of friends and nieghbors who've extended a strong helping hand. In this case, our neighbor Yvette, who also happens to be Marin's guidance counselor through Eastlake High, along with her entire family and some wonderful friends organized a raffle to benefit Marin. Yvette, her husband and children, and friends sold tickets in front of the local grocery store to raffle off an X-box (popular item this Christmas!) and raised lots more funds through donations. We are exceedingly humbled by this effort and exceptionally grateful for the support.

Saturday night some Marin, Camie and some friends from the neighborhood(including Yvette's daughter Hannah)enjoyed the holiday spirit by decorating Christmas cookies and singing carols to the neighbors. On their rounds they ran in to other parties going on around the block and ended up attracting a lot of other carolers along the way. It was a real scene that lasted too late in to the night, especially for Camie who had a soccer game first thing in the morning.

Sunday evening we went to a Christmas concert at our local church where we saw lots of friends and neighbors and enjoyed two hours of wonderful, inspirational music. One performance in particular really moved us as the singer was accompanied by a video of Rick & Dick Hoyt, the father & son team that runs marathons and triathlons together; Rick is disabled, wheelchair bound since birth, and can't communicate easily... his father Dick pushes him through the competition using special equipment to swim, bike and run with his grown son. It's and amazing story of inspiration depicted in a book titled "It's Only a Mountain" which was recently gifted to us by our good friend and former neighbor Stephen F. During the concert performance we were moved to tears with the video and Marin was particulary touched. She really appreciates what they are accomplishing and knows she's doing something similar. Knowing how their story touched her, she realizes how her challenge affects others. It was a wonderful evening.

Here's making every day this holiday season just as special,

Marin, Nancy, Matt, Camlyn & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Saturday, December 9, 2006 1:33 AM CST

Well, I guess the jinx set in. Marin was poked and proded for almost 4 hours today trying to get a line going in her vein. They kept having to call in the "expert" without any luck. Finally, they succeeded. Marin spent almost 7 hours today in the hospital for her chemo seccion. I wish we would have looked more closely at the port they mentioned at the beginning of this journey but she is still so determined not to have one that I guess obeying her wishes is what's important. Now the second to last round for this clinical trial is completed. They told us that next month is the last one.

The docs think we should do nothing from here and just wait. Marin still has cancer. As a year ago, just doing nothing doesn't sit well with me. I feel like we need to continue to fight this battle until we succeed. Suggestions, comments, thoughts, knowledge, and anything else that comes to mind are very welcome at this point. We have done extensive research but it was several months back and there might be something new and exciting out there. We continue to do the macrobiotic diet, numerous suppliments, the beam-ray light therapy, homeopathic pills, noni juice, chiropractor, and meditation. Swimming comes first and foremost above all.

There was a highlight to Marin's day because she made it out of chemo just in time to get down to the ice-rink to watch Michael do his skating performance. He was rudolph and his two darling friends he skates with (they're girls) were the elfs. It was the most adorable thing ever! Michael did wear the antlers also. When he goes to skate every Tuesday, the intention is to play ice-hockey. When he gets there, however, he'd rather skate with his friend Sara (I think he thinks she's pretty cute).

The angel tree continues to be adorned with beautiful angels and one has greeted her each and everyday when she arrives home. No swimming has taken place this week so next week we'll hit the pool hard.

We hope everyone of you are enjoying the holiday spirit filled in the air. I am trying to take as many moments each and everyday and remembering what this season is all about. God has blessed our world with his son. He is there, loving us more than anything in this world, and is silently waiting for us to fellowship with him. Please take time out each day to thank God for everything in your life. As I look at those angels on Marin's tree, I know that God sent Marin down to be my Angel. Her calming spirit, smiling face, and undying optomism are truely inspirational. She faces each day with such courage that all it can do is humble you.

Thank you for helping her shine!
Have a blessed day!

Love, Marin and Nancy
Matt, Camlyn, and Michael


Thursday, December 7, 2006 10:11 AM CST


When we returned home earlier this week, there was a wonderful surprise on our front porch. A four foot Christmas tree with an angel on top and a card from an anonymous patron. The note was so cute, explaining that this angel tree for Marin would receive a new angel every evening until Christmas with friends and well-wishers leaving the angels in prayer for her healing. We have a suspicion who may be behind this and so far four angels have appeared. What a neat gift for Marin and all of us. Marin has always collected angel figurines, and now they are so extra special to her.

Toay we go in for the fourth of five days of chemo. Iwrote yesterday how smooth everything has gone this week... I just hope I didn't jinx us for the next two days. While Marin has grown a little extra tired, she hasn't realled slowed down much. Still staying on pace with most of her therapy and she did a good school work session with Ashley Wednesday afternoon.

This weekend we're looking forward to a skating show that Michael is in and has been practicing hard for with our friend Elizabeth and her children. The one problem is Mike apparently is reluctant to wear his reindeer ears to top off his costume. Oh, the drama. Also, we're getting ready for a little holiday gathering that Camie is hosting for a few friends Saturday night. Busy busy but fun, fun.

Three down, two to go,

Marin, Nancy, Matt, Camlyn & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html



Wednesday, December 6, 2006 6:24 PM CST


Through three days of chemo this week and things are going very smoothly for Marin. The nurses at the HemOnc clinic are so nice and efficient that it's barely a bite out of her day. Already before noon today, she had a session of physical therapy with her school therapist and with Debbie right when she woke up. Then it was off to Children's hospital for her chemo, and while we were in the infusion, Marin was visited by a writer working on a story for the Make A Wish Foundation annual report. It was a very nice visit with Marin all smiles as she recounted her experience with Make A Wish earlier this spring. She brought her scrapbook of the trip and had a great time showing it to the writer Susan who told Marin about her own travels, which she really enjoyed hearing about.

So far she hasn't felt any ill affects of the treatment this week, although she has been feeling a little tired. She continues to amaze us with her grace and attitude and we appreciate all the notes of support.

Making the most of everyday,

Marin, Nancy, Matt, Camlyn & Michael



In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Tuesday, December 5, 2006 9:21 AM CST


In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html

Well it was good news Monday as we went in for Marin's MRI and chemotherapy treatment. Once again her MRI scan looked better... officially listed as 'stable', it's apparent that the cancerous portion of the tumor is less than it was a few months ago. There's no question the good Lord is smiling on Marin... thanks for all the prayer support, it's working!! After checking the scan, we learned that her white blood cell level was strong and well above the threshold to begin her treatment right away. So we went right in and started her infusion and took care of round one with four more to follow through the rest of the week.

From here we're trying to manage her next course of action regarding the tumor. The clinical trial she's been involved with is scheduled to end after two more months. Her doctor informed us of his opinion to let it sit and watch the tumor the the hope that the affects of the chemo continue to show positive results. He expressed concern that longer exposure to the medication will have negative affects in other areas, and that's why the course of treatment is limited to 12 months. We are now examining other treatments that are out there and we've learned of some other trials that could be a good fit. Now we have to consult with other doctors for opinions on Marin's case to determine the best choice going forward. Thanks for all the suggestions that have been suggested so far, and we're always looking for new information.

Have a great Tuesday,

Marin & Mom,
Matt Camie & Michael


Saturday, December 2, 2006 11:23 PM CST


After a wild week of weather, when snow piled high for a few days at mid-week, then disappeared over a 48-hour period, Saturday was bright and spectacularly clear, even if it was still very cold. Marin worked with her occupational therapist today after missing some time earlier in the week because of bad travel conditions so her weekend wasn't completely her own. Later, she did some Christmas preperation with Mom.

Sunday Marin gets back in the pool to work with the para-athlete team. We have our sights set on a couple of meets next spring, so she certainly has something to work for. In the meantime, the holidays are coming soon so there's always plenty to do around the house. Marin's trying to get in a lot of knitting for gifts and such and she's been working hard on her scrap booking as well. She's also been working on drawing with a book her therapist Beth introduced and it's turned in to a fun exercise everyday to draw and teach drawing to Mike. Fun all around.

Last but not least, we're really enjoying a great day to be a Bruin. Way to go UCLA!

Have a great Sunday,

Marin & Mom,
Matt Camie & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Friday, December 1, 2006 12:17 AM CST


Out from under the snow we're back in to our normal routine with Camie back on schedule at school and Mike returning to pre-school today. He was little bummed that there wasn'r anymore snow on the ground for hime to have snowball fights at recess. Marin is back on point with all her therapies and is doing great.

Thursday we had her IEP meeting at Eastlake HS and it was a very productive meeting with several of the education professionals here (including her teacher Ashley) and it was very encouraging to note the progress Marin has made in one year. She's getting better!! We'll have another session to finalize her education plan in the next few weeks and look forward to more improvement.

Next week we're going in for her MRI on Monday and if her blood levels check out, she'll have her next round of chemotherapy. We're looking forward to seeing the scans & thanks for your continued support through prayer energy.

Have a wonderful weekend,

Marin & Mom,
Matt Camie & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Thursday, November 30, 2006 11:26 AM CST


We are slowly thawing out from a deep freeze over the past few days although it didn't slow Marin down too much. She hasn't been swimming since Monday because travel on the roads has been a problem, but she's looking to get back in the pool today or posssibly tomorrow. Wednesday she started with a long school session with Ashley who was free early int he day because schools were closed. Later, a little more frolicking outside in the snow although the excitement was wearing off a little as the cold seeped in. In the afternoon we were able to get Marin to the clinic for to have her blood drawn, which had been overdue by several days.

The schools reopened Thursday so Camie's back at her classes and Marin's therapists are all back on schedule. We're going in for an IEP evaluation to further steer her school program. She's come a long way since we did this a year ago and we're feeling very hopeful about her future and the future of her education. It's extremely difficult, but Marin's met every challenge and probably exceeded almost everyone's expectations. She still has a long way to go, but her determination is amazing. Thanks as always for your notes of encouragement and continuing prayer support.

Walkin'in a winter wonderland,

Marin & Mom,
Matt Camie & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html




Wednesday, November 29, 2006 11:50 AM CST


Going on two days of being snowed-in, we're determined to make the best of it. While the roads are icey, travel isn't impossible but the schools are closed for a second straight day Wednesday so the kids are around and looking for fun. Tuesday everyone enjoyed the new blanket of snow with Marin and Michael spending a lot of time with Dad out in the weather. Marin visited her friend Naomi at the end of the street, and for their home-based photography lesson, they used a video camera to catch all the neighborhood kids having fun in the snow. The precipitation was too powdery to construct a decent snowman but it was just right for light snowballs.

After watching the kids having such a good time, Marin wanted in on the action so indeed she worked her way to the slope and rode down on a sled!! It was classic, and Marin hasn't laughed as loud in quite some time. It wasn't exactly 'Daredevil's Run' mind you, but sledding in the snow is the kind of good, clean fun that will bring a smile to anyone. Later in the evening, Marin and Mom had something of a girls nigth out when they escaped to our neighbor Val's house to watch the conclusion of "The Bachelor" (tivoed from Monday night).

Wednesday we're going to have her blood drawn in anticipation of next week's scheduled MRI and chemo session. A few extra prayers this week would be helpful. In the meantime, we're trying to stay same & warm while enjoying a little wniter wonderland (for now).

Ho ho ho,

Marin & Mom,
Matt Camie & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Tuesday, November 28, 2006 2:56 AM CST


A busy day and adventurous day for Marin and all of us began with speech therapy with Jessie and then swimming with coach Karen, followed by a couple hours of school with Ashley who was excited to point out that Marin now always wants to begin her lessons with reading because she's getting better and more confident at it. In the evening, we went in to downtown Seattle in the falling snow to meet and greet a group of friends from the Make A Wish foundation. The organizers asked us to attend to recount our experience last spring and of course we were honored to do so. Marin looked great in her black and grey outfit topped off by the black beret she brought home from Paris, a good conversation piece when discussing our trip. They showed the video news clip from KOMO news and then we spoke about our experience, including the Make A Wish trip. Marin was very charming and personable and the guests asked her lots of questions which she answered pretty well. Mom also spoke and was impressive as well. The guests all enjoyed Marin's scrap book from the trip and we met some really nice people. One of them invited us to stay at the restaurant for dinner, so we did and it was a great time. After that, getting home was an adventure.

Yesterday, Nancy's comment about the weather was something like "we were blessed with snow". Monday was more like "we were blasted with snow"! As anyone who watched the Seahawks beat the Packers on Monday Night Football knows, Seattle was hammered with a blanket of snow, creating a mess of a traffic nightmare; people on the radio were saying the combination of weather and traffic conditions resulted in the worst rush-hour commute on record with thousands of people still jammed on the roads well beyond 11pm. We experienced our own adventure coming home from dinner. 10 o'clock at night and the roads were jammed while snow fell and ice packed underneath. Getting up the hill to where our neighborhood is was quite the dicey proposition and a last second decision to turn around was a life saver. We stopped at a local Fred Meyer store and bought snow chains for Nancy's van... great move! Although it took around an hour for Dad in a snow-filled parking lot (with no gloves) to get the chains to fit, and to help another man in the parking lot put his chains on, we were able to navigate the icy roads rather easily in Mom's Spydey van. Along the way home, the road was absolutely littered with stranded cars. Our climb up the hill included a few obstacles, like sliding cars trying to go where they couldn't, but we managed to roll in to the garage about 12:15 and everyone's sleeping in their own beds tonight! We're anticipating no school tomorrow, so I'm sensing a snowman or two might be making an appearance.

Cold, tired, and happy to be home,


Marin & Mom,
Matt Camie & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html




Monday, November 27, 2006 3:17 AM CST

The Thanksgiving weekend is over. We had a very fun and productive one staying here in town. It seems like every year decorating for christmas becomes more and more of a chore. Perhaps because we are a little worn out already! Anyway, we diligently tried to drag stuff out of the garage and place things around the house. Our lights, as everyone can probably relate to, were quite troublesome in getting them all to work and up. We have come to the conclusion that we'll just buy new lights every year. For some reason, they always don't work when we take them out of the box.

In addition to the christmas decorating, we were blessed with snow today. Not enough to stay on the roads but just enough to stick to the grass and bushes. Michael so enjoyed it. Yesterday the family went out in the hustle and bustle of the holiday season. We ended up at a bowling alley and had quite fun. Marin is still pretty strong, even if it's with her left hand.

Today, Marin kept inside and busied herself with scrapbooking, homework, and some old movies. She's so at peace just moving from one little activity to the next around the home. She truely is happy and thankful. Hopefully we will get out to swim, etc tomorrow. Monday night we speak at the Make-a-Wish Foundation. I'm sure Marin will shine as she always does.

Happy, healthy, and peaceful end to Thanksgiving and the start of the holiday season.

Sleepless in Seattle,

Marin and Mom

matt, camlyn, and michael


Saturday, November 25, 2006 2:42 AM CST


The day after Thanksgiving means different things to different folks. For some it's the frenzy of the first day of holiday shopping. Others, it's a lazy day to shake off a turkey & gravy hangover, & chase it down with a bunch of college football games. Matt had the pleasure(?!) of covering the Oregon vs. Oregon St. 'Civil War' in Corvallis, in the driving rain. Camie took a big thurmos of hot chocolate up to the mountains to go sledding with friends. And Marin, God bless her, she went through her typical weekday routine of physical therapy in the morning, then swimming with coach Karen. She's really remarkable in that she thrives on working herself each and every day. She's actually become quite defiant in exercising her independence, getting testy when anybody tries to do something for her, like help her tie her shoes, etc. It's good natured, but serious nonetheless.

The big project around the house was getting out the Christmas decorations and Mom worked hard setting up the house Friday. Of course, she had plenty of 'help' from Michael, who fancies himself as a bit of an interior decorator. Marin put in her two cents as well, selecting the spot for the tree that wasn't where Mom thought it should go originally, but in the end, Marin's selection worked out the best. The house looks great & the Christmas spirit is seeping in.

Looking forward to a relaxing weekend (even Marin),

Marin & Mom,
Matt Camie & Michael

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Friday, November 24, 2006 0:50 AM CST

Great day of eating! We hope everyone had a great Thanksgiving day. We certainly did! We made the whole turkey feast and by mid-afternoon, the Morrison household smelled like Thanksgiving. Marin got to indulge in the smell even though she doesn't eat any meat. She did have a special meal with king crab legs, sweet potatoes, and of course, lots of veggies!

In addition to eating, Marin also worked on her scrapbook she has from our cruise back in March. It's amazing how she can cut, paste, glue, etc. with one hand.

As soon as we finished eating Turkey, we immediately started pulling out the Christmas boxes. Camlyn started working on everyone's Christmas list. Marin's list has two things on it. Number 1: arm and leg working, Number 2: no more cancer. Not a bad wish list! Michael had Camlyn complete his list with gum, nuts (so he can crack them in the nutcrackers), and his own clicker for the TV. Don't you just love those 4 year old boys.

We have so much to be thankful on this day. All of our good friends, family, life, and love. I know Marin radiates love and happiness from all of you. I am so thankful for everyone who takes time to read our site and say a little prayer for Marin and our family. Thank you for helping us keep the faith.

Again, HAPPY THANKSGIVING!!

Marin and Mom
Matt, Camlyn, and Michael


Thursday, November 23, 2006 11:06 AM CST

Happy Thanksgiving!! The Morrison house is just getting going. I've been up for a couple of hours but Marin and the rest of the gang are slow moving.

We have plans to just hang out and eat with our family. Matt is traveling out of town this afternoon. The kids and I are going to go over to a friends for desert a little later.

We have so much to be thankful for. Lets all count our many blessings today.

I will write again this evening to give you the detail accounts of our day of thanks.

Gobble, Gobble,

Nancy
Marin, Matt, Camlyn, and Michael


Wednesday, November 22, 2006 10:01 AM CST


Tuesday's appointment with a neurologist at Children' Hospital went well as we were able to begin getting an idea of how to look forward from here. It's strange that this was our first meeting with an actual neurologist since we moved to Seattle. We had seen other in the neurology department, but they were nurse practitioners and we had to keep pounding on the door to see an actual specialist. Our concern has been Marin's medications; what's still necessary and what changes might be needed as we go forward. Essentially, the doctor confirmed that her two primary medications to prevent seizures were still necessary and the supplements she's taking seem to be in good balance. One concern is how the long-term use of some of these seizure drugs could affect her liver, so we'll be monitoring that.

After the appointment (rather early in the AM) Marin enjoyed a good long nap (something we all need now and again!). She worked with therapists in the afternoon and with her teacher Ashley in the evening. And then Marin even learned something from Michael, the little man that Mom refers to as 'a jumping bean' decedided he needed to teach his big sis how to jump in the air. And to our amazement, Marin bent herself at the knees, with her brace on her right ankle and foot and launched herself up off the ground to the delight of us all! She got pretty good air, too. The giant smile on her face told us she was just as thrilled as we were. It's amazing how a such a little act can be so satisfying. It really was impressive and an indication that at least she has good strength in the muscles that are working in her right leg.

Looking for little leaps everyday,

Marin & Nancy, Matt, Camlyn & Spidey

In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html


Tuesday, November 21, 2006 0:17 AM CST

Good evening friends and family,

Marin had a great, hard working day all day today. Her spirit shines through every moment of her day. We packed it in so much today, she didn't even have time for a siesta, which is a daily ritual.

Today she started with her new OT who has so many wonderful ideas and recomendations. She has recomended a new brace that also works as therapy for her arm in hopes of finding some return. Marin is enthusiastic when she's coming and she has great little projects for Marin also.

After that, Marin went swimming with Coach Karen. As always, this is the highlight of her day and we continue to express to everyone how much of a priority it should be for Marin. Tomorrow we have a neurology apt. so hopefully it will go fast so Marin can get a swim in tomorrow.

Anyway, after swimming went by her favorite restaurant, CoHo's Cafe, to get a salmon burger to go. Marin has been getting these for several months about 2 or 3 times per week! The cook always takes special care when I order it to make marin's lunch perfect. Today, they comped the meal! How nice was that! Ashley was waiting for Marin when she got home and worked 2 hours with her, then 1 1/2 hours with Jessie her speach teacher. It's amazing how some things she is progressing so wonderfully, and others remain such a struggle. One set of words that really stumps her are: over, under, beside, and between. For some reason, her brain continues to confuse these.

Everyone is starting to talk about Thanksgiving and all their plans. We are just hanging tight. Matt has to go out of town on thanksgiving day so we will be eating early turkey dinner. Perhaps the girls, Michael, and I will go to the movies. Anyway, we have soooooooooo many things to be thankful for that we will have a full time job that day just thinking about all of you and your effortless and continued support for our Marin. Last year we had only lived in Seattle a couple of weeks and ordered a turkey dinner from Whole foods. It was really good but not the same as my great turkeys! Marin can't eat turkey anyway so I will be making fish also.

Today was productive for all our family. I only slept about 1/2 hour last night so I fell asleep in the middle of the day on the couch. I'm still tired so I'm sure I'll be in bed before midnight. Marin is just going to be now at 10:30.

If this holdiay is taking you traveling, we pray for your safe travels and fun with family and friends. Peace with each and everyone of us.

Sweet dreams,

Marin and Mom

Matt, Camlyn, and Michael


Monday, November 20, 2006 1:04 AM CST


In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html

Marin had a nice weekend, shopping on Saturday with Mom and her friend Naomi. The girls enjoyed a nice afternoon at the mall and lunch together while getting some holiday shopping taken care of. Sunday we visited with friends at church and had a generally relaxing day working on scrap books and homework. It's pretty impressive how well she can scrapbook with one hand.

Tomorrow Marin starts out again with therapy, swimming, etc. See you all tomorrow.

Marin and Family


Saturday, November 18, 2006 10:45 AM CST


In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html

Marin's competitive spirit was front and center Friday as she hit the pool again with coach Karen. First, she had to get her blood drawn (a weekly condition of her clinical trial) which she protested would take away from her workout. She dealt with it though, and later she refused to take a certain acne medication because she said it slows her down in the pool. She wants to go FAST! When she arrived for her swim, her friend at the pool, a lifeguard named Carol, had a few ideas to help Marin get some work on her problem limbs. So while going through the workout prescribed by coach Karen, she also used some tools help stretch out her arm and stimulate some motion. It went rather well and Marin is open to new strategies to get things working. After and a nice lunch as a reward, we went home to work with Ashley. A good workout, then a good school session preceded a long late afternoon nap. Life is good.

Saturday the girls are going shopping with our good friends and neighbors Elizabeth and Naomi. Marin has been looking forward to this outing for weeks, a chance just to do something fun without appointments and commitments. There's always something, but at least she'll get a few hours of social time today.

Make it a great weekend,

Marin, nancy, Matt, Camlyn & Spidey


Saturday, November 18, 2006 10:14 AM CST


In case you haven't seen the KOMO news story (it's really good), check it out on the web at:
http://www.komotv.com/news/4616302.html

Marin's competitive spirit was front and center Friday as she hit the pool again with coach Karen. First, she had to get her blood drawn (a weekly condition of her clinical trial) which she protested would take away from her workout. She dealt with it though, and later she refused to take a certain acne medication because she said it slows her down in the pool. She wants to FAST! When she arrived for her swim, her friend at the pool, a lifeguard named Carol, had a few ideas to help Marin get some work on her problem limbs. So while going through the workout prescribed by coach Karen, she also used some tools help stretch out her arm and stimulate some motion. It went rather well and Marin is open to new strategies to get things working. After and a nice lunch as a reward, we went home to work with Ashley. A good workout, then a good school session preceded a long late afternoon nap. Life is good.
Saturday the girls are going shopping with our good friends and neighbors Elizabeth and Naomi. Marin has been looking forward to this outing for weeks, a chance just to do something fun without appointments and commitments. There's always something, but at least she'll get a few hours of social time today.

Make it a great weekend,

Marin, nancy, Matt, Camlyn & Spidey


Friday, November 17, 2006 4:39 AM CST


In case you haven't seen the KOMO news story, check it out on the web at:
http://www.komotv.com/news/4616302.html

As bad as the weather had been for a few days, it turned around beautifully on Thursday. Sunny and clear, anyway... still rather chilly (hey, it is November). Marin went back to working out in the pool with coach Karen in the afternoon with the goal of getting ready to compete in some upcoming para-athletic events in the spring. When we think about what she did last week, going through five days of chemo, then swimming in the state meet Saturday and competing well, it really is amazing. Thursday night we had a couple visitors to the house as Marin is becoming a bit of a media darling. Fred Northup is Ashley's boyfriend and he has his own creative production outfit (southdowncreative.com) and he's doing Marin's story for a new online venture by Daryn Kagan, a former co-worker at CNN. Fred and his friend Eric spent a few hours interviewing Marin and Camie as well as Ashley for the story that fits in with Daryn's theme of good news and inspirational content. We have no idea when this may be available at darynkagan.com, but we'll let you know.

We've had a lot of contact recently from old friends who've looked us up either through Marin's story or another means and it's been wonderful to get reconnected. As well, all the well wishes from so many good people out there who've been touched by our situation has really reinforced out belief that there is a lot of positives that can be gleaned from difficult circumstances. We're honored that the Make A Wish Foundation has asked Marin to appear at their annual dinner in a couple of weeks; her story has inspired a lot of hope. Now we'll have to conquer a little public speaking issue but we're looking forward to it.

Friday's arrived, make the most of it!

Marin, Nancy, Matt, Camie & Michael


Thursday, November 16, 2006 6:49 PM CST



In case you haven't seen the KOMO news story, check it out on the web at:
http://www.komotv.com/news/4616302.html

Greatings from the blistery, rain-drenched Northwest. The weather has actually been similar to that of Georgia but apparently very unusual for the Seattle. Rivers are overflowing, power has been out everywhere. Marin, as well as the rest of us feel quite at home.

We started out our day lying on the couch cuddled up in blankets watching "Columbo." Michael and Cami were at school and Marin and I decided to hang loose. We felt very devious starting out the day like that but it was a lot of fun. Peter Faulk is an incredible person himself. Matt read an article about him and he told a funny story. When Peter Faulk first went to college, he lived in the dorms with a roommate. The first night, he proceded to take out his glass eye and take off his fake leg and lye them by his bed. He said his roommate dissappeared the next day and never came back!

As Marin sees and hears more stories about people overcoming their adversities, it makes her push harder and realize that she too, can live a fulfilling, prosperous life. After our relaxing time, Marin had a full day of therapy. She didn't make it to the pool today but will start again 5 days a week tomorrow. We have started a new "wave" for working on getting some return on Marin's right side, especially her arm. The new ocupational therapist goes after a lot of the alternative things that we have come so strongly to believe in and has numerous ideas for Marin and her arm. It's exciting! We are always looking and striving for something new to focus on, in addition to all her long term goals.

It's great to see Marin so excited about swimming again. She asked me when is the next time she's going to race. All the support she received at the state swimmeet was great for her sole. She's got plans on how she can do a little better next time! I feel that since the tumor has been "stable" since March, which is 8 months now, we can get her focusing on actually competing a little more now. There is a para-athelete meet which requires some pretty good qualifying times, next March that she is shooting to compete in.

We have received some pretty special messages and phone calls these last few days. Marin's excitement and smile continues to be infectious not only in our home, but when we step out and about. I know she thinks about every entry people write and every call, card, etc.

I thought I would let everyone know that her clinical trial is ending in three months. This means we have to start our research, etc. for deciding what our next step is to help Marin get rid of her cancer. I am putting this out here now so if anyone hears info., please start sending it our way. I want to make another trip to our Doc in Chicago and see what he feels our next step should be.

Here to a happy, sleep-filled night and an energetic and productive day tomorrow. "Yesterday is history, tomorrow is a mystery, and today is a present!" Thank you everyone for filling our days with presents!

Smiles,

Marin and Nancy

Matt, Camlyn, and Michael


Wednesday, November 15, 2006 10:29 PM CST

Greatings from the blistery, rain-drenched Northwest. The weather has actually been similar to that of Georgia but apparently very unusual for the Seattle. Rivers are overflowing, power has been out everywhere. Marin, as well as the rest of us feel quite at home.

We started out our day lying on the couch cuddled up in blankets watching "Columbo." Michael and Cami were at school and Marin and I decided to hang loose. We felt very devious starting out the day like that but it was a lot of fun. Peter Faulk is an incredible person himself. Matt read an article about him and he told a funny story. When Peter Faulk first went to college, he lived in the dorms with a roommate. The first night, he proceded to take out his glass eye and take off his fake leg and lye them by his bed. He said his roommate dissappeared the next day and never came back!

As Marin sees and hears more stories about people overcoming their adversities, it makes her push harder and realize that she too, can live a fulfilling, prosperous life. After our relaxing time, Marin had a full day of therapy. She didn't make it to the pool today but will start again 5 days a week tomorrow. We have started a new "wave" for working on getting some return on Marin's right side, especially her arm. The new ocupational therapist goes after a lot of the alternative things that we have come so strongly to believe in and has numerous ideas for Marin and her arm. It's exciting! We are always looking and striving for something new to focus on, in addition to all her long term goals.

It's great to see Marin so excited about swimming again. She asked me when is the next time she's going to race. All the support she received at the state swimmeet was great for her sole. She's got plans on how she can do a little better next time! I feel that since the tumor has been "stable" since March, which is 8 months now, we can get her focusing on actually competing a little more now. There is a para-athelete meet which requires some pretty good qualifying times, next March that she is shooting to compete in.

We have received some pretty special messages and phone calls these last few days. Marin's excitement and smile continues to be infectious not only in our home, but when we step out and about. I know she thinks about every entry people write and every call, card, etc.

I thought I would let everyone know that her clinical trial is ending in three months. This means we have to start our research, etc. for deciding what our next step is to help Marin get rid of her cancer. I am putting this out here now so if anyone hears info., please start sending it our way. I want to make another trip to our Doc in Chicago and see what he feels our next step should be.

Here to a happy, sleep-filled night and an energetic and productive day tomorrow. "Yesterday is history, tomorrow is a mystery, and today is a present!" Thank you everyone for filling our days with presents!

Smiles,

Marin and Nancy

Matt, Camlyn, and Michael


Tuesday, November 14, 2006 10:02 AM CST

O.K., I am sitting here with tears running down my face from all the wonderful entries I have just read. You all are an inspiration to Marin as well as our whole family! Marin's topic of the day is that she wants to do her races over again. That's our Marin. Her competitive nature, yet with such a gentle spirit.

Marin started her day with her speech lesson with Jessie which ended shortly due to an interview with King 5, another local TV station. Jessie was commenting how well Marin was doing yet when the interview was taking place, she was at a loss of words and finding it hard to express herself. It's amazing when she's not concentrating on her speech, it comes freely. When she is concentrating, she can't get the words out. A lot of us tend to be like that too! I didn't get ready for the shoot today thinking I could avoid being in the interview but no such luck. Instead, I am now going to be on it, not ready, baseball cap and all! (At least it's a UCLA cap.) We think this story is going to run on King 5 tomorrow, tuesday, but we're not sure. We'll update info. when we find out.

We didn't get a chance to make it to the pool today so tomorrow it is top priority.

Cami and Michael continue to brighten Marin's life up on a daily basis. They both are such a joy to be around and always keep Marin laughing. Michael got new black, Converse high-top tennis shoes and wore them to bed. He knows how to tie his shoes and took them off and on about 20 times today! Being 4 is such a joyous age.

We're so glad so many of you got to share in the joy of watching Marin swim. Again, I want to thank you for all to fantastic, uplifting words you have posted. Also, Marin received some e-water which has the nutrients she needed and it seems to be working like a charm. Thank you sooo much.

Hugs, tears, and cheers of happiness for Marin as she continues to fight hard not only for herself, but for all of us to keep believing.

In case you haven't seen the news story, check it out on the web at:
http://www.komotv.com/news/4616302.html

God bless and have a wonderful day!

Nancy and Marin

Matt, Camlyn, and Michael (and his new shoes!)


Tuesday, November 14, 2006 0:54 AM CST

O.K., I am sitting here with tears running down my face from all the wonderful entries I have just read. You all are an inspiration to Marin as well as our whole family! Marin's topic of the day is that she wants to do her races over again. That's our Marin. Her competitive nature, yet with such a gentle spirit.

Marin started her day with her speech lesson with Jessie which ended shortly due to an interview with King 5, another local TV station. Jessie was commenting how well Marin was doing yet when the interview was taking place, she was at a loss of words and finding it hard to express herself. It's amazing when she's not concentrating on her speech, it comes freely. When she is concentrating, she can't get the words out. A lot of us tend to be like that too! I didn't get ready for the shoot today thinking I could avoid being in the interview but no such luck. Instead, I am now going to be on it, not ready, baseball cap and all! (At least it's a UCLA cap.) We think this story is going to run on King 5 tomorrow, tuesday, but we're not sure. We'll update info. when we find out.

We didn't get a chance to make it to the pool today so tomorrow it is top priority.

Cami and Michael continue to brighten Marin's life up on a daily basis. They both are such a joy to be around and always keep Marin laughing. Michael got new black, Converse high-top tennis shoes and wore them to bed. He knows how to tie his shoes and took them off and on about 20 times today! Being 4 is such a joyous age.

We're so glad so many of you got to share in the joy of watching Marin swim. Again, I want to thank you for all to fantastic, uplifting words you have posted. Also, Marin received some e-water which has the nutrients she needed and it seems to be working like a charm. Thank you sooo much.

Hugs, tears, and cheers of happiness for Marin as she continues to fight hard not only for herself, but for all of us to keep believing.

God bless and have a wonderful day!

Nancy and Marin

Matt, Camlyn, and Michael (and his new shoes!)


Sunday, November 12, 2006 0:25 AM CST


Wow, just like old times! Marin was terrific this evening at the Washington State 3-A High School Swim meet, swimming two event in the para-athlete division. The feeling of competition had her quite nervous going in and I think she was thrilled to be back involved in a big competition. The support of so many wonderful friends really helped Marin feel a little more at ease as her Eastlake teammates were well represented and made a good showing in support of. Our thanks to coach Emily & the crew for their efforts in helping Marin have this opportunity. At the same time, the swimmers and parents from Bellevue High made a great show of support as well, including big signs in the cheering section that said "swim Marin Strong". Camie and her friend Natalie, Mikey, and Natalie's dad Rob all made the trek to the aquatic center for the event, and nobody was disappointed.

Marin just continues to amaze us. Swiming in two events, all against disabled athletes, and all boys, Marin finished 5th out of seven competitors in the 50 freestyle. She dove from the side and looked great throughout, beating out two of the six others in the race. In the 50 backstroke, she finished third and thrilled the crowd when she did a flip-turn at the finish, thinking she was doing a 100. A light moment in a very exciting competition. She was awarded two state meet medal for her places, and we figure since she was the only girl in the races, we'll go ahead and say she's the state champ in those two events. She earned it.

It was fun seeing so many new friends all in one place and watching everyone else compete so well. Our friend Molly did a great job helping the Bellevue team to the team title and other swimmers and divers we've begun to know really made a great showing. It was wonderful for us to be back at a big meet and enjoying Marin do her thing.

Be sure to check out the KOMO-4 news story done by Eric Johnson. It's a terrific piece that really captures Marin's spirit. Here's the link:

http://www.komotv.com/news/4616302.html

Have a great Sunday everyone,

Marin,
Nancy & Matt, Camlyn & Michael


Friday, November 10, 2006 8:57 PM CST


TGIF! It's been an eventful and emotional week, capped off today by the ying & yang of Marin's struggle. On her fifth and final day of her chemotherapy treatment this month, the nurses had an awful time trying to find a healthy vein to insert her IV. After attempts by two different nurses, and almost an hour of digging in her arm, a third infusion specialist finally struck a gusher. Marin handled the frustrating situation with typical cool, but it meant she spent a lot longer in the chair today that she expected to. Anyway, the treatments are over for another month and the healing continues.

When we arrived home and after resting in the afternoon, we were excited to see the feature story on KOMO-TV that aired today in the 4-o'clock news hour. Eric Johnson did a terrific job on the piece and while Marin watched with an ear to ear grin, the rest of us watched through a layer of tears. It's a very emotional story captured beautifully by Eric & his photographer Matt. We've linked here to the KOMO web page with the story that also links to the video. CHECK IT OUT:

http://www.komotv.com/news/4616302.html

Tomorrow, Marin swims in the Washington State High School Swim Meet at the Weyerhauser Center in Federal Way. We are so proud of her 'comeback' and all of this would not be possible with out the amazing support of so many of you coast to coast. Please continue to pray for her recovery and we'll let you know how it goes Saturday at the big meet.

Have a wonderful weekend!

Marin,
Mom& Dad, Camie, Michael and thousands of friends!


Thursday, November 9, 2006 6:30 PM CST


Four down, one to go in Marin's chemo regimen this week. So far, it's been pretty problem-free, with some relatively quick in & outs the last few days. Once again her left elbow begins to look like hamburger, make that steak tar-tar, by the end of the week so her nurse found a vein lower in her left arm today. This relieved a little discomfort and also allowed Marin better movement to play cards, or as was the case today, Connect Four. We brought our portable game to the infusion ward and with Michael in tow, played endless rounds of the addicting game. Marin is very good, and Michael is very competitive... so something had to give. It turned out that Marin's kindness won out as she allowed Mikey his share of victories. Perhaps it was simply good tact, as an upset Spiderman isn't good for anyone around.

We're now told the feature on local KOMO-TV won't be running this evening after all. We're excited about seeing the piece and we'll pass along the information on the air time (perhaps Friday) and any link we're able to find to it.

We're also getting excited for her participation in the State swim meet on Saturday. She'll be competing in a couple of para-athlete events and I'm pretty sure she's the only one there that's training this week on chemotherapy. She's a pretty terrific kid.

Have a great TGIF,

Marin,
Mom & Dad, Camlyn & Michael


A reminder that there are some new pictures in the photo page and check out this video of Marin swimming on youtube.com!
http://www.youtube.com/watch?v=aIvEP06jC38


Thursday, November 9, 2006 4:52 PM CST


Four down, one to go in Marin's chemo regimen this week. So far, it's been pretty problem-free, with some relatively quick in & outs the last few days. Once again her left elbow begins to look like hamburger, make that steak tar-tar, by the end of the week so her nurse found a vein lower in her left arm today. This relieved a little discomfort and also allowed Marin better movement to play cards, or as was the case today, Connect Four. We brought our portable game to the infusion ward and with Michael in tow, played endless rounds of the addicting game. Marin is very good, and Michael is very competitive... so something had to give. It turned out that Marin's kindness won out as she allowed Mikey his share of victories. Perhaps it was simply good tact, as an upset Spiderman isn't good for anyone around.

This evening we're excited to watch the local KOMO-4 news as Marin will be featured in a story. Reporter Eric Johnson has been working on this piece for a couple of weeks since her teacher Ashley sent out a beautiful letter suggesting Marin's stroy would be a good one for the local news. She's also the subject of an upcoming feature on KING-5. Quite the little media star! We're told the story will likely air between 6-7 pm tonight (Thursday). If we can link it, we'll do that ASAP.

We're also getting excited for her participation in the State swim meet on Saturday. She'll be competing in a couple of para-athlete events and I'm pretty sure she's the only one there that's training this week on chemotherapy. She's a pretty terrific kid.

Have a great TGIF,

Marin,
Mom & Dad, Camlyn & Michael


A reminder that there are some new pictures in the photo page and check out this video of Marin swimming on youtube.com!
http://www.youtube.com/watch?v=aIvEP06jC38


Wednesday, November 8, 2006 0:53 AM CST

Good evening!

Day two of chemo went by without any glitches today. They were ready for Marin when we arrived, got her iv in right away, and we were out 3 hours later. During chemo, we played several games of rummy which Marin has mastered. It's pretty hard to beat her now.

After chemo, we went to our usual Blue C Sushi place. They have come to know us and look forward to seeing Marin everyday during her chemo. It was raining pretty hard today and the receptionist even help walk Marin out to the car. I thought it always rained in Seattle but apparently, not so much! So many people are having flooding problems, etc. We, fortunately, live up a hill so flooding doesn't seem to be a problem around us.

After lunch, we went to St. John's Church to meet up with some friends that we met while in Lourdes, France. It was wonderful to see some of them who have grown to be quite special to Marin. One man she met gave her a "piece" of the Grotto that is in Lourdes. Marin and Cami have a collection called "Pieces of Places." They have everything from The Berlin Wall, The Piramids, Rhodes Castle in Greece, Disneyworld, the road in Atlanta, and now the Grotto. (They even have a piece of Andrew Jones" (baseball player) house.) Anyway, she gave several hugs and wowed them with her undying smile.

Whenever we go out to see those people that know Marin, I realize what an inspiration she is to soooo many people. I stood in the background and watched so many faces light up when Marin enters the room. At the hospital, at the sushi place, and at the church. I feel so beat up so much of the time now and she just keep getting stronger, happier, and more determined. I am so lucky to have Marin around me daily to remind me how precious each day is and how much we need to appreciate it. We hope everyone had a wonderful day. We thank you for each note, call, card, meal, ride, smile, and tear. Let's make the very best of tomorrow, just as Marin does.

Floating in Setttle,

Marin
Mom, Dad, Camlyn and Michael


Tuesday, November 7, 2006 0:43 AM CST


After one very long day spent in Children's Hospital today, we're happy to report that indeed, Marin was able to begin her chemotherapy session today. It was tight, though. Her number was very close to the threshold, and let's just say we were given a little benefit for the effort. Our nurse practioner gave us 1-time only repreive and allowed Marin to get started today so that she could be finished by the weekend. She swiming in the State swim Meet saturday at the big Weyerhouser Aquatic Center where some really great swimmers will be in the pool. We're looking forward to seeing Arianna Kukors do her thing, she's one of the very best in the country and her family has been very nice to us since we've moved here. Marin is both excited and nervous about competing in a big meet... just like she always was. I do think she's feeling proud of herself in the pool again, even as she struggles with her sense of excellence.

Our day at Children't turned out to be unexpectedly long when we had to go back for more blood testing just as we were getting ready to leave. This added another 2 hours to our already tedious session. It looked as though Marin's sodium level was dangerously low, so the nurses caught that and re-checked it. It wasn't as bad as they thought, but it was good that they took the precaution. With as much working out that Marin has been doing, water isn't enough to replace what she's losing. She can't dring sugary drinks like Gatorade, so we're looking for some alternative that can help replace the sodium & electrolytes but without sugar. So after six hours in the hospital, we returned home where Marin took a good nap and later played with Mike & Camie. We're going back in for round two on Tuesday. Once again, your prayers worked for us. Thanks everybody.

Seahawks win,

Marin, Nancy, Matt, Camlyn & Spiderman


Sunday, November 5, 2006 11:52 PM CST


Taking advantage of a relatively 'free' weekend, Marin enjoyed herself while getting the necessary rest and nutrition to hopefully boost her white cell count for Monday. We're foing in tomorrow for another shot at her next chemo session. The white cells shoulf be better, if eating lots of broccoli and blueberries have anything to do with it. Sundau wasn't all rest as Marin swim with Kiko and the paralympic group she's attached to. And she had a significant breakthrough as she practiced her starts from the pool deck. In races so far, she's only been able to begin in the water off the wall. But after working on standing and diving off the side today, she's gonna go for it in her next meet, which is the state meet next weekend. It was great to see her take on the next challenge and watch her confidence grow. The ability to start off the deck is a nice step forward and we expect it will help her a great deal in the races next weeeknd. With the school season almost over, Marin will begin working out with coach Karen more during the week. We hope she can get her chemo started tomorrow and she'll be able to squeeze in some workouts before next Saturday. Thanks as always for your wonderful support.

Have a wanderful week ahead,

Marin, nancy, Matt, Camie & Mike


Saturday, November 4, 2006 11:50 PM CST


A rainy Saturday here in the Northwest was still a day to enjoy. Before we said so long to Uncle Gus we had lunch altogether and reflected on a good week together. Thanks for the visit Gus!
After lunch, Marin met Molly at the movies and everyone saw the final "Santa Clause" movie. Thumbs-up all around for a predictable but well done sequel. It's really nice for Marin to see Molly, who makes her feel so good about herself.
Saturday evening the electricity went out at home and stayed out for several hours. Still, Marin, Mike & Mom had a good time amusing themselves with imagination, like playing hide & go seek and other kinds of fun. Good times!
We're focusing on Marin getting her immune cells up for another shot at chemo on Monday.

Have a great Sunday,

Matin, Nancy, Matt, Camlyn & Mike

Once again, a reminder that there are some new pictures in the photo page and check out this video of Marin swimming on youtube.com!
http://www.youtube.com/watch?v=aIvEP06jC38


Saturday, November 4, 2006 11:19 AM CST


Once again, Marin went in to begin chemo on Friday but her white blood cell count was not high enough to begin the session. It's building, but not quite there so we'll wait until Monday to try again. On the bright side, that means Marin doesn't have to spend the weekend going back and forth to Children's Hospital. We'll use the time to see some friends; Marin and Molly planned to get together Saturday to see a movie. Then Sunday she plans to swim with the para athlete team she's involved in. Please pray for positive test results on Monday.

A few significant family matters deserve some recognition here. Congratulations to Grams & Grumpy on their 50th!! wedding anniversary Friday. They're doing well and there will be a celebration later this month. We also ask for extra prayer support for our cousin Jim Livingston who underwent heart surgery on Thursday. Our thoughts and prayers are with Jim, Theresa and their boys.

Have a wonderful weekend,

Marin, Nancy, matt, Camie, Mike & Uncle Gus

Once again, a reminder that there are some new pictures in the photo page and check out this video of Marin swimming on youtube.com!
http://www.youtube.com/watch?v=aIvEP06jC38


Wednesday, November 1, 2006 9:31 AM CST


There's nothing like a crazed Halloween candy sugar high to help you type faster! We hope everyone had a safe and happy holiday. Marin went in for an MRI and to begin her next round of chemo Tuesday. The good news is her MRI showed that her tumor remains stable and the images continue to look encouraging. There is a cyst issue there but it's better than cancer cells. The less good news that Marin's white cell counts were too low for her to get her first day of treatment. We'll go back in on Friday with hopes that she's back up to an acceptable level.

We had a very enthusiastic Halloween here despite very cold temperatures. Marin handed out treats (play-dough) with Uncle Gus at the house while Michael in full Spiderman mode tore around the nieghborhood with Mom and some of his little friends to harvest a bounty of tooth decay. Lots of the neighbors commented that Spidey was the most fired-up trick or treater they'd ever seen. Camie made quite an impression as she and her friend Natalie did a great job on their costumes as crazed maintenance workers. Among the details, a uni-brow applied with mascara that Cami was unable to wash off... oh well, it's crazy dress day at school today, so she can get away with it for another 24-hours.

Thanks again for all the prayers and support. Marin's MRI looked good, and we'll try the blood test again Friday.

Trick or Treat!

Marin, Nancy, Matt, Camlyn, Spiderman & Mean Gus

Once again, a reminder that there are some new pictures in the photo page and check out this video of Marin swimming on youtube.com!
http://www.youtube.com/watch?v=aIvEP06jC38


Tuesday, October 31, 2006 0:33 AM CST


The fall colors are spectacular right now and with clear weather today it was really pretty... but reeaallly cold!! But not too cold to get in the pool! Marin went swimming today at the Bellevue club with coach Karen and coach Klaas and had a great work-out. She really appreciates the opportunity to work with them and she really enjoyd herself. Mom & Mike went along for a little R & R, fun more than a workout... good times for everyone. Camie had a great day at school with spirit week going on and tomorrow she gets to wear her halloween costume to school. She's going as a maniac janitor... and she may have to hide from the real janitors at school! Monday evening the whole family including uncle Gus went ot Mike's pre-school for a pumpkin carving and singing performance. The operators of Sammamish Learning Center have been amazingly kind to our family and they were very happy to see Marin come and enjoy the family activity. It was a lot of fun and Mike's pumpkin turned out great! We're looking forward to Halloween tomorrow, and Uncle Gus didn't even pull any dirty tricks on 'Devil's Night'!

Tomorrow Marin goes in for her MRI and first chemo session if her blood count is up. Please pray for a good week as she'll be spending several hours every day in the chemo chair. Have a great Tuesday and we hope it's all Scary-Good,

Marin Nancy, Matt, Cami, Spiderman & Uncle Gus

Once again, a reminder that there are some new pictures in the photo page and check out this video of Marin swimming on youtube.com!
http://www.youtube.com/watch?v=aIvEP06jC38


Sunday, October 29, 2006 1:26 AM CST


We're enjoying a visit from Matt's brother 'Uncle Gus' this week. He flew up from San Franciso to spend the week & go trick or treating with the kids. Saturday Marin & Mom spent a little quality time together and did a little shopping at a local mall. It's been a while since Marin's been shopping for some new clothes and she felt great to get out and do what girls do. Her health has been good and since next week is a chemo week, it was important to get out and live a little. The ladies had a good time together and picked out some cute stuff for Marin. Then everyone met up at Red Robin for dinner before going to see a movie. Everyone enjoyed "Man of the Year" with Robin Williams (who went ot the same high school as Matt & Gus) the story about a comic who becomes president. The consensus is it's a good movie with a better story than expected. Plenty of laughs, yes, but not a goofball comedy. We'll spend tomorrow showing Gus the sights downtown and get ready for a big week beginning Monday.

Once again, a reminder that there are some new pictures in the photo page and check out this video of Marin swimming on youtube.com!
http://www.youtube.com/watch?v=aIvEP06jC38

Have a great Sunday,

Marin, Nancy, Matt, Peach & Spiderman + Uncle Gus


Saturday, October 28, 2006 2:28 AM CDT


With autumn in full bloom, the colors here have been very pretty. Marin felt better Friday and she finished a knitting project she's very proud of. Our new nieghbor next door is having twins next month, a boy and a girl. Marin knitted two little snug-fitting caps, blue and pink. She hasn't presented them yet, but she's so proud of her effort and so are we. Marin knows as well or better than anyone the spirit of generosity, and how fortunate we are when we're able to help others. That's an important lesson we've all learned by being on the receiving end of such kindness over the last many months. Being able to help is such a blessing... and allowing others to help is too. Thank you all once again for your kindness, generosity, and prayers. All are helping us in so many ways.

Have a wonderful weekend,

Marin, Nancy, Matt, Camlyn, Michael & Uncle Gus! (visiting for the week)


Friday, October 27, 2006 2:23 AM CDT

Good Evening. It's really late here. I'm having a hard time going to sleep. Today was the last swim meet for Marin for Highschool. She didn't get to swim because I got lost and couldn't find the pool. As always, Marin was her stoic self, whereas I feel terrible. I hope I feel better about it in the morning.

Marin has been feeling strange the past few days. She actually had me call the doc today which is a very rare occurance. They said not to worry that it's probably just her brain wires moving around a little.

I'll write again in the morning. I'm having a hard time with her missing this meet. It was the last time also to see several of the girls. She was seeded 2nd in her heat also. It's hard moving around so much and trying to find your way around a new city.

Marin and Nancy


Wednesday, October 25, 2006 10:08 AM CDT

Good morning. The fall is settling in here nicely. The weather is still beautiful. We must have moved here the day it started raining last year. There is some beautiful here in the great Northwest.

Marin continues to work hard with her daily activities. I feel her therapy, physical and ocupational, could be stepped up a notch. The creativity with the therapist is lacking. Actually, there is a ocupational and physical therapist Marin sees from the school for 1/2 every other week that are really good. The problem is that is not really any time. The therapy insurance has cut the other therapy in 1/2. We have only about 50 hours for the year and I feel like those hours are being waisted on not the best care. The physical is important yet she also gets swimming and daily activities in. The speech really needs to be a lot more. She has shown significant improvement and will continue to improve with a lot of work.

High School swimming is winding down with only two more weeks of practice. Marin has so enjoyed participating in this. She tries to interact with the other kids and really has a huge smile the whole time she is there. I can't wait until next year when she has this whole year to swim and get stronger. She just loves the thrill of the race!

The knitting is going strong with having about 10 hats under her belt. She's now moving onto trying other things and I have been keeping her stocked with lots of yarn.

Marin has also been doing a photography class at her friend, Naomi's, house. Naomi is homeschooled and her mom, Elizabeth, has been a wonderful person to Marin. Marin has joked in the past that Elizabeth is a better ocupational therapist than her real ones. Anyway, yesterday they did a different project making a stepping stone. I still would like to get Marin painting too. I have to start working on that again.

Hope everyone has a great day!

Swimming strong,
Marin and us

P.S.: Last night one of the local news stations came and interviewed Marin. The comment that stood out the most was when the reporter asked her why she fought so hard to get back in the water and race. Her comment was "In the water, I'm strong!" Indeed she is!



Monday, October 23, 2006 3:53 PM CDT


Marin enjoyed a good weekend and is going strong to begin this week. After swimming for her school and going to the high school football game Friday night, she enjoyed a relaxing Saturday and a nice visit from some family friends on Saturday evening. Sunday everyone went ot the Seattle zoo and had a great time enjoying some pretty autumn weather with lions, tigers, and bears. Today we took Marin for her blood work and we're hoping for good news on her white cell count as another round of chemotherapy is due again next week (already!). All the while she's been knitting like a fanatic. Her hats and scarfs are turning out beautifully and she really enjoys the therapeutic aspect of the job.

Check out the new photos on the photo page here!

And thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06. The video already has over 1000 hits!!

http://www.youtube.com/watch?v=aIvEP06jC38


Have a great week!

Marin, Nancy, Matt, Camlyn & Spidey


Saturday, October 21, 2006 11:32 AM CDT

Good morning! Marin swam in another swim meet yesterday and had fun. She wanted to try the 100 butterfly and keeps laughing about her performance. I think trying so hard to race, she forgot to breathe and on her third turn, choked up a bunch of water. She swam over to the side, regained her breath, and embarrasment, and continued on back to her lane and finished her race. She also did the 100 back with taking off a little more time.

As always, Marin continued to smile, laugh, and enjoy the thrill of the race. As she has said several times in the past to me, "Mom, I just want to race." Being the spectator is sometimes very painful, as you can imagine, her nearly always coming in dead last. Then I think, I am so thankful that Marin is in the pool, racing again and doing what she loves. The community support for Marin continues to grow as people start finding out about our little hero. The local Sammamish review wrote an article, her high school, Eastlake High, has an article about her in the school newspaper, and local TV stations are itching to do stories on her. Emotionally, I continue to be a little beaten up until I look at her. Her attitude has surpassed anything I could have imagined, always finding joy in each and everyday and thing she accomplishes.

Marin finished off her day last night going to the football game briefly. For Cami, it's the Jr. High social event of the week, Marin just took in the atmosphere.

Ashley, Marin teacher, friend, and now one of the family, is more than anyone could ever hope for. She's becoming Marin's spokesperson during interviews, etc. Her energy, positive outlook on everything, creative brain, etc., remindes me a lot of Marin and they make a perfect match. Ashley also understands the feelings of a 16 year old, how she wants friends, to go to dances, etc., and thinks of ways to help some of those things happen.

All is well and going strong in the Morrison household. Happy weekend to each and everyone of you.

Marin
and the "gang"


Thursday, October 19, 2006 11:47 PM CDT


Some thrilling news this evening as Marin told us that she suddenly has more feeling in her right hip! Without much explaination, she was absolutely giddy with the revelation and she was feeling great! Tonight she went to see Her pal Molly and the Bellevue High swim team compete in a duel meet. She was enjoying the company of coach Karen, coach Klaas, and Carol from the Bellevue club and lots of the swimmers from the Bellevue team and as she was having a good time, she simply began to have more feeling in her hip. She feels like she'll be able to walk a little better and naturally this was very exciting for all of us. It's further proof that the power of prayer, perseverence, and hard work absolutey continues to pay off.

This week Marin was the subject of a terrific feature article in our local community newspaper, the Sammamish Review. The reporter did a great job capturing the spirit of Marin's struggle and the importance of the support she has in her life. Thanks Taylor!

Have a wonderful weekend,

Marin, Nancy, Matt, Camie & Spidey

Check out the new photos on the photo page here!

And thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06. The video already has over 1000 hits!!

http://www.youtube.com/watch?v=aIvEP06jC38


Tuesday, October 17, 2006 11:08 AM CDT


A little something fresh for you; we have NEW PHOTOS on the photo page here. Check out Marin, Camie, Michael, & Ashley on a summer outing (thanks Ashley) and the Bellevue High Swim team showing their support (thanks Molly).

Working strong in her rehab, Marin has been busy. Her speech therapy requires a lot of homework now, and with her PT and swimming, she's always on the go. Her knitting has become as much of an obsession as a hobby. She's knocking out hats almost daily... Dad finally got his. They're colorful, warm and fuzzy and we love 'em!

We're swimming strong through the week,

Marin, nancy, Matt, Camie & Mike

Thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06. The video already has over 1000 hits!!

http://www.youtube.com/watch?v=aIvEP06jC38


Saturday, October 14, 2006 10:43 PM CDT


Thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06. The video already has over 1000 hits!!

http://www.youtube.com/watch?v=aIvEP06jC38

On Friday Marin participated again with the Eastlake swim team in a dual meet at Redmond pool. She swam in both relay races for the Wolves, and showed very well swimming the backstroke leg of the medley relay. Leading off (as backstrokers always do) Marin got a good start off the wall and hung tough with the other swimmers for the first 25 or so... she still managed to finish ahead of one competitor, fifth out of six swimmers in the backstroke leg. Marin had a big smile when we told her she held off one competitor.

Later Friday evening, Camie attended her first junior high dance. It was kind of exciting for all of us Marin especially was anxious to find out all about it at the end of the night. The upshot is Camie had a great time with her friends and Marin enjoyed a vicarious thrill hearing about it. It was cute.

Living strong,

Marin, Nancy, Matt, Camie & Spidey


Thursday, October 12, 2006 8:15 PM CDT


Thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06. The video already has over 1000 hits!!

http://www.youtube.com/watch?v=aIvEP06jC38

Marin continues to be productive in her daily routine. After OT rehab in the morning, speech therapy, then swim team practice, her teacher Ashley arrived later in the afternoon for her schoolwork. Marin surprised Ashley with a new knit hat that she'd been working on for her. Of course, Ashley wore it proudly and Marin was even more proud to have made it. She's becoming a little knitting factory as she really enjoys the process and it helps her with her dexterity. Already she's working on another multi-colored hat and when I asked who it's for, she said "I think this one's for me!". Marin, you deserve it.

Living strong each and every day,

Marin, Nancy, Matt, Camie & Michael


Wednesday, October 11, 2006 0:50 AM CDT


Back on step with her rehab and schooling, Marin has been feeling much better over the past couple of days since finishing her latest treatment. She swam today with coach Karen and as always, felt great after her workout. Left up to her own device, she'd probably prefer a leisurely swim and relaxing workout, but she does much better when she's challenged and she feels much better for it when it's all said and done.

In the afternoon, she met her Eastlake teammates at school for team pictures. Marin is so proud to be on the team and as she gets to know the other girls better, she's opening up more. She shared a couple of "buddy pictures" with a few of the girls on the team who've been very sweet in befriending Marin. We really have witnessed the best in people while dealing with Marin's illness at it validates our faith every day. Thank you!!

Thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06.

http://www.youtube.com/watch?v=aIvEP06jC38

Dive in!

Marin, Nancy, Matt, Camie & Michael


Sunday, October 8, 2006 11:27 PM CDT


We're happy to report that Marin felt much better Sunday, one day after her final dose of chemo for this session. We thank everyone for their wonderful support once again. The prayers are always felt here, and they're working!
After feeling dizzy for most of the week, Marin slept a lot Saturday and in to Sunday morning. She felt good enough to go on a family outing, with the intent of seeing the 'Dead Sea Scrolls' exhibit at a downtown science museum, but we were denied by the sold-out sign at the door. Oh well, another Sunday afternoon at the movies, that's OK. The kids watched the animated "Open Season" (it was OK, they said) while the folks stole away to see the much anticipated "The Departed" (good movie, great performances, gory in parts, and maybe not quite up to the great expectations, but certainly worth the ticket).
Thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06.

http://www.youtube.com/watch?v=aIvEP06jC38


Friday, October 6, 2006 9:35 AM CDT


Thanks for all the wonderful responses to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06.

http://www.youtube.com/watch?v=aIvEP06jC38

Going in to the fourth day of five chemotherapy visits this week, Marin has been feeling pretty groggy. Her dizziness started Wednesday and hasn't really let up. We're told this is a common reaction to the treatment as patients endure more and more of the medicine. She wasn't able to get in the pool the last couple of days and she was very disappointed to miss her team's swim meet on Thursday. I'm writing this before she's up on Friday, so we'll hope she feels better today. Three down, two to go.

We want to express our deep thanks to so many friends and neighbors who've been extra supportive this week with meals and car pools for Camie, etc. The help has been immense and we truly appreciate all the love & prayers.

Running on,

Marin, Nancy, Matt, Camlyn & Spidey


Wednesday, October 4, 2006 5:41 PM CDT


Sorry for the delay on Tuesday's update. The upshot is Marin's MRI once again showed that the tumor was stable, meaning no discernable growth, and that's always good news. We're always looking for signs of eradiction, but we can't say that about this scan when compared to last month. There is significant improvement over the scan that was taken last November, so we're thankful for the progress Marin has made. One concern that we're keeping our eye on is the area of resection that seems to be filling up with cyst fluid. It's better than cancer cells, but we're keeping a close eye on how this develops. We would ask for prayer support that the fluid dissipates as the cancer cells die and are washed out.

Marin started her chemotherapy Tuesday and all went well. She went directly from the oncology clinic to her Eastlake swim meet and once again had a very inspirational performance. She swam in two relays, and held her own in the backstroke of the medlay relay and in a 50-free leg off the 200 free relay. A great day alltogether.

On Wednesday, she woke up a little dizzy and was not feeling well through most of the day. She still managed to meet with her PT from school and then take her second dose of chemo today and soldiered through it without complaint. Her dizziness continued through the day, so she rested most of the afternoon. We'll hope her reaction means that the medicine is working. She rested the rest of the day and did some more knitting to pass the time.

Thanks for all the wonderful responces to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06.

http://www.youtube.com/watch?v=aIvEP06jC38

Living strong,

Marin, Nancy, Matt, Camlyn & Mike


Tuesday, October 3, 2006 0:46 AM CDT


Thanks for all the wonderful responces to the video of Marin on YOUTUBE.COM. If you missed it, here's the link to Marin swimming in her high school meet on 9/29/06.

http://www.youtube.com/watch?v=aIvEP06jC38

We had a little taste of celebrity Monday morning when we were visited and interviewed by a reporter for the local Sammamish community paper. He had covering one of the swim meets last week and our good neighbor Janice steered him toward Marin's story. Marin dressed nice and put on a little make-up and was looking good for her picture. She also showed off her new handiwork with her knitting... she's now finished three caps; one for herself, Camie, and Mom, in less than a week. The experience with the reporter was really nice for her; it made her feel special.

Later in the afternoon Marin went in for her MRI and while everything went smoothly, we're unable to relay any updates as we went in too late in the day to have the scan assessed by the official MRI evaluation team. We'll get that info tomorrow as Marin is scheduled for the first of five days of chemotherapy. Another day full of anti-cancer prayers can only be helpful. Prayers regarding her white blood cell levels were answered as her number was strong and well above the necessary threshold. So Tuesday she begins her next chemo cycle and we'll let you know what the MRI shows.

Thanks for sharing all of this with us,

Marin, Nancy, Matt, Camie & Mike


Saturday, September 30, 2006 3:25 AM CDT


Wow, what an incredible Friday! Marin swam in her Eastlake High meet against Redmond and the turn out was awesome. Since the banner sent by her teammates at Collins Hill was so huge, lots of supporters turned out to help hold it up. Her friend Molly's mom Deb turned out as well as several of her therapists; Liz, Karen, and PT Deb, and her terrific teacher Ashley, along with Ashley's boyfriend Fred (who earlier used Marin in a corporate video he directed). Fortunately for everyone else, Fred brought along his video camera and taped Marin's race at the meet. AND he uploaded the video on to YOUTUBE.COM so that everyone anywhere can enjoy it! What a great gesture!! Just cut & paste the following link and you can see Marin competing in the 100 backstroke on 9/29/06.

http://www.youtube.com/watch?v=aIvEP06jC38

There was no J-V heat this week so Marin was placed in the varsity race, and she was laughing when she recounted how weird it felt to have the entire pool cheering wildly as she finished a distant last in the heat. But the joy of the event was infectious for everyone. Marin shaved two seconds off the time she swam last week, finishing the 100 back in 1:44 today. Aboout 18 months ago, just before she was diagnosed with a brain tumor, she clocked in at 1:01 to set a school record at Collins Hill High in Georgia. In some ways, Marin still holds herself to that standard... but she understands the significance of her effort and to see how far she's come since surgery 13 months ago left her completely paralyzed on her right side is truly amazing. Her spirit abides and she continues to strive. She's a great inspiration.

Thanks everyone for sharing this wonderful event with us,

Marin, Nancy, Matt, Camlyn & Mike




Saturday, September 30, 2006 3:02 AM CDT


Wow, what an incredible Friday! Marin swam in her Eastlake High meet against Remond and the turn out was awesome. Since the banner sent by her teammates at Collins Hill was so huge, lots of supporters turned out to help hold it up. Her friend Molly's mom Deb turned out as well as several of her therapists; Liz, Karen, and PT Deb, and her terrific teacher Ashley, along with Ashley's boyfriend Fred (who earlier used Marin in a corporate video he directed). Fortunately for everyone else, Fred brought along his video camera and taped Marin's race at the meet. AND he uploaded the video on to YOUTUBE.COM so that everyone anywhere can enjoy it! What a great gesture!! Just cut & paste the following link and you can see Marin competing in the 100 backstroke on 9/29/06.

http://www.youtube.com/watch?v=aIvEP06jC38

There was no J-V heat this week so Marin was placed in the varsity race, and she was laughing when she recounted how weird it felt to have the entire pool cheering wildly as she finished a distant last in the heat. But the joy of the event was infectious for everyone. Marin shaved two seconds off the time she swam last week, finishing the 100 back in 1:44 today. Aboout 18 months ago, just before she was diagnosed with a brain tumor, she clocked in at 1:01 to set a school record at Collins Hill High in Georgia. In some ways, Marin still holds herself to that standard... but she understands the significance of her effort and to see how far she's come since surgery 13 months ago left her completely paralyzed on her right side is truly amazing. Her spirit abides and she continues to strive. She's a great inspiration.

Thanks everyone for sharing this wonderful event with us,

Marin, Nancy, Matt, Camlyn & Mike







Friday, September 29, 2006 0:19 AM CDT


Marin received a wonderful gift in the mail this week - a huge banner signed by her friends on the Collins Hill High swim team to inspire her in her swim meet Friday. This was a big lift for Marin as she realized how many of her friends are still close in spirit. What a great gesture by Coach Weaver and the team (thanks everyone!). Friday she swims again, and we learned today that there is a para-athlete component to the Washington State High School meet, so Marin will get a chance to participate in the big meet at the end of the season.

We're asking once again for prayers this weekend as Marin is looking at another round of chemotherapy beginning next week. All the good intentions have been working so far and we strongly believe that the spiritual component has been instrumental in Marin's healing. We'll let you know how it goes Friday in the pool.

TGIF once again,

Marin Nancy, Matt, Camie & Spidey


Wednesday, September 27, 2006 1:54 AM CDT

Wow! Another amazing day for Marin as she competed once again in the pool for Eastlake High. In her first meet last week she really kicked up her competitive spirit and stepped up again in their meet Tuesday. Once again she competed in the 50-free and the 100-backstroke. Again she was swamped in the freestyle as she was unable to make up any ground off the start. While all the others dive off the blocks, she has to start from the wall and it's just too much of a disadvantage. But this was not a problem in the backstroke as all the swimmers start in the water. We wrote last week about how she managed to pass one competitor in her first meet... this time, Marin finished ahead of three swimmers! Quite an awesome race as she swam with the pack for all four lengths, finishing third out of six swimmers in the JV heat. It was incredible... Marin was beaming, and there was quite a buzz around the pool as the spectators and opponents began to realize that they're witnessing something special. Marin's confidence and competitive spirit grow each time out and she continues to inspire and amaze us.

At the same time, so many reader of this web site have inspired Marin to reach this point. We want to offer a special thanks to all the great people who've organized and contributed to the WAVE OF COURAGE FOUNDATION. Marin recently received a large donation from this terrific organization that we know represents the care and concern of so many of her friends around the globe. We wear the 'Super Marin' T-shirts proudly and know that many of you have purchased them in support of her. We want to extend our sincere gratitude and let everyone know that every purchase and contribution is humbly appreciated.

Enjoying each wonderful day as a gift,

Marin, Nancy, Matt, Peach & Spidey


Friday, September 22, 2006 10:39 PM CDT


Marin made all of us very proud today, taking part in her first swim meet in over a year. She swam two events for the Eastlake High Wolves in a duel meet; she competed in the 50 freestyle and the 100 backstroke. Both events were the junior varsity race. In the 50, she started in the water because she was unable to stand and dive with the rest. She did an admirable job of getting down and back with a solid flip turn. She finished last in her heat, but was absolutely inspirational in doing it. Undaunted, she took her turn in the 100 back and was even more impressive. She got off to the best start of any of the five swimmers in the pool but was quickly passed by everyone after several strokes. Off the first flip turn, she was holding her own and then at the 50-yard mark she was still going strong, even pulling closer to another competitor. She had just made her final turn when the winner of her heat was finishing, so she was about 25-yards back... and coming strong. Her consistent one-armed stroke and her conditioning were working well for her. Over the final 25-yards, she caught and passed a competitor (one of her own teammates) to finish 4th out of five swimmers in the heat. There was lots of cheering and support from her teammates and parents in attendance commented about how inspirational she was. Mom, Dad amd Mike were all there to watch her and there were some misty eyes around the pool. She finished the 100-back in 1:46, about 45 seconds off her Collins Hill School record, but as awesome a race as we've ever witnessed.

It's been a very special day, on Uncle Gus' birthday too, and we want to thank everyone for sharing in our joy. This day could not have happened without the love and support of the Good Lord and everyone who has been with Marin in spirit throughout this journey. Your prayers, notes of encouragement in her guestbook, good deeds, and great friendship has helped Marin stay focused and determined and she is making us all so proud.

A great way to start the weekend,

Marin, Nancy, Matt, Camlyn, & Mike


Thursday, September 21, 2006 10:23 AM CDT


Truckin' through this week Marin has been working hard through her therapy, school lessons, homework and swim practice, and yet she's managed to pick up a new hobby. Our good friend and neighbor here Elizabeth gave her a knitting needle and ring and Marin has taken to it with a lot of enthusiasm. She was exposed to knitting before through our cousin Eileen and she knew she liked it, but seemed too busy at the time to stick with it. Now she can't put it down. The ring allows her to weave the yarn with one hand and she's already well on her way to producing a new hat. Cool. And in addition to the knitting, she's also taking photography lessons with Elizabeth's children through their homeschool program. Marin has always enjoyed photography, and this class is a nice compliment to all the scrap booking she's been doing. We continue to be blessed with good people around us who offer a little of themselves and bring so much to our lives. Pass it on.

In appreciation of our friends & family,

Marin, Nancy, Matt, Peach & Spidey


Tuesday, September 19, 2006 2:02 AM CDT


How nice it is to hear from good friends and family members we haven't been in touch with in a while. That's why we love this web site. Your notes really encourage Marin and inspire all of us as we feel the love helping us get through each day, week, month... Thanks you.

Marin has been going strong in her 'back to school' routine, which for her means therapy and lessons at home and then swim team work outs. She is a couple of practices away from becoming eligible to particiapte in a meet, which she'll prbably do this Friday. A couple weeks ago she was apprehensive about swimming with the group, now she can't wait to get in there and compete. It's really something to see her determination. She's working a lot, smiling a lot, laughing a lot, and living a lot.

Making the most of each day,

Marin, Nancy, Matt, Cami & Mike


Saturday, September 16, 2006 0:29 AM CDT


Marin enjoyed a good week that included a second swim meet Friday with her high school team. Again, she wasn't eligible to swim in competition because she hasn't made the ten required practices yet, but just warming up today gives her credit and she's getting close. Once again, she enjoyed herself thoroughly with the teammates she's getting to know and the Eastlake Wolves won their duel meet again.

Camie and Mike enjoyed a good week too, as Camie started a hip-hop dance class this week and also went to a Friday night football game. Mike, in the meantime, asked to have his traininig wheels taken off his bike, and in an instant he was riding a two wheeler all over the block. This was a big thrill for all of us and I'm smiling as a write this. We wrote earlier about Marin taking her class picture and other little moments of life that made this a special week in many ways.

Here's to a great weekend,

Marin, Nancy, Matt, Cami & Speed Racer


Thursday, September 14, 2006 0:28 AM CDT


School picture day comes around once a year, with maybe a little fuss, but then it's gone. Often it isn't until years later that we really appreciate what a special day this is. The goofy smiles and funny haircuts bring memories flooding back. For us, Wednesday was a most special school picture day as Marin sat for her photo at Eastlake High School. To be honest, this is something we thought might never happen again for her. A simple slice of everyday life can mean so much. She's been enrolled for almost a year but has never attended a class on campus. She isn't close with any of her classmates and has only one teacher (the incomperable Ashley!). Now slowly, as she continues to beat down brain cancer and rehabbing ten times harder than Chris Farley and Charlie Sheen combined, she's getting around to her life a little better. Joining the swim team at Eastlake earlier this month was a brave start. She attended a swim meet with her team on Tuesday, warmed-up and cheered with teammates, chatted and smiled throughout the meet, and learned that she can be a valuable member of the group. I'm happy to say the Wolves were great, winning every event, and there's no question Marin can compete at this level. It will be fun to see when she's eligible in a few weeks. Sitting for her picture today was another strong step as she faced the curious stares of fellow students while she went about her business. I can't wait to see the picture!

Smile!

Marin, Nancy, Matt, Camlyn & Mike


Monday, September 11, 2006 11:47 PM CDT


A date to remember is a Monday to move forward. Marin was up & at 'em working on speech therapy first thing in the morning. As her therapist pointed out, now that she's beyond the one year mark since her last surgery, the recovery factor is now driven more by her effort and concentration than by the simple healing of her tissue. So she's taking on more homework to stimulate her speech and reading. It's great to see her working so hard and making progress, no matter how small.

As part of her physical therapy, she went out with her therapist and ordered coffee at Starbucks. Marin had to say, "Decaf, sugarfree, soy, latte please!" and she did! Hey, you gotta get the basics down to make it in this world. After a good PT session, she took a little time to rest before joining the Eastlake swim team for practice today. Tomorrow we're going for the second meet of the season. Marin won't be eligible until she participates in a few more practices, but it's fun for her to with the team.

We're praying for everyone touched by the tragedy of 9/11 on this 5th anniversary of the event and we're looking to the future with optimism even as we know it will be a long struggle. Marin has helped us understand this lesson in life and we're so thankful for her.

Thanks as always for the love, prayers, and support.

Marin, Nancy, Matt, Cami & Mike
(Uncle Kelley made it home safe)


Saturday, September 9, 2006 11:49 PM CDT


Thanks again for all the prayers, love, and support as Marin came through another week of chemotherapy with her trademark spirit intact. It was trying, to be sure. In Saturday's fifth and final session, after getting 'needled' over four straight days, she had a tough time holding the infusion needle in her arm today. It was a problem that set her back about two hours, but it was handled without complaint. Marin has been feeling a little woozy over the past couple days, which is typical as she hits the 3-4-5 day mark of her chemo session. She spent the rest of the day resting and although she was tired, she reports that she was feeling good (no doubt happy to be finished wiht the routine for another month).

In the meantime, Camie had big day on the soccer pitch as she scored the winning goal for her team today. Way to go Peach! Among the spectators cheering were Mike & Uncle Kelley... we're all so proud.

Looking forward to a great Sunday,

Marin, Nancy, matt, Camlyn, Mikey & Uncle Kelley


Saturday, September 9, 2006 11:00 AM CDT


Sorry the updates have been a bit sporadic this week. This morning as Marin goes in for her fifth and final chemo session for this month, we're reflecting on a very busy week. In addition to the chemotherapy, Marin joined her high school swim team at Eastlake high and has been attending practices (she needs to participate in ten work outs before she can be eligible). She did that through Thursday and on Friday, her fourth day of chemo, she was getting kind of worn out. She went to the team's swim meet in downtown Seattle with the intention of warming up, but she was too dizzy to get in the water. She's getting to know some of the girls on the team and is really enjoying herself. Today, she finishes her chemo and we let the medicine go to work!

We've had an enjoyable visit with Uncle Kelley this week. Friday night we went to a Mariners game, and again saw Richie Sexson hit a grand slam for the second time. Marin really enjoys getting out and going to the ball games and it's a fun night out for the whole family. We're thinking of old friends and hope everyone has a great weekend.

Living strong,

Marin, Nancy, Matt, Peach and Spidey
with special guest appearance by Uncle Kelley (spelled correctly with two 'e's).


Wednesday, September 6, 2006 11:52 AM CDT


Tuesday was an amazing day for Marin on so many levels. First, we want to thank everyone who sent up prayers and positive energy for her MRI Tuesday morning. The results continue to be very encouraging; while the official reading is that her tumor remains 'stable' or no detectable growth, it actually appears that the cancerous cells are taking a beating. The portion of the scan that shows up as cancer looks to be fading compared to the scan from last month, and when compared to a scan from six months ago, there's definitely some positive progress. We remain cautious in our optimism, but there's enough good news here that we had to share with everyone. We definitely feel the power of your prayers at work here, along with good medicine, nutrition, and spiritual attitude.

Marin's white blood cell level tested strong and she began her scheduled course of chemotherapy in the morning. She'll continue that through Saturday morning, and continue to get better.

Tuesday was also a special day for Marin on a social level. On the first day of school, and after doing her chemotherapy session, she arrived at a local pool to join her high school swim team! This is a big step for Marin as she was apprehensive about the concept while struggling with her self image when it comes to her swimming ability. We've been talking about this step for several weeks and we impressed upon her that the opportunity to be on a high school team comes and goes very quickly in a person's life, and that's where great friends are made. With an introduction to the team from her teacher Ashley, she wore a big smile on her face as she met the girls on the team and it was quickly apparent they were very happy to accept her. Then when the workout began, Marin busted out. She started out in lane one, the slowest, but quickly showed she has much more game than anyone would think. She was faster than expected, and moved out of lane one, through lane two, and finished the workout in lane three! She definitely inspired a few of her new teammates, two of whom commented after seeing Marin work that they would never complain again! It was a wonderful experience for everyone. It's going to be a fun season!

It will be tough to top a most memorable Tuesday, but Marin's ready to do it again Wednesday. Chemo in the morning, swimming in the afternoon, and school work in between. Thanks again to everyone for your love and support and sharing this big day with us.

More good times to come,

Marin, Nancy, Matt, Peach, Spiderman & Uncle Kelly


Wednesday, September 6, 2006 9:47 AM CDT


Tuesday was an amazing day for Marin on so many levels. First, we want to thank everyone who sent up prayers and positive energy for her MRI Tuesday morning. The results continue to be very encouraging; while the official reading is that her tumor remains 'stable' or no detectable growth, it actually appears that the cancerous cells are taking a beating. The portion of the scan that shows up as cancer looks to be fading compared to the scan from last month, and when compared to a scan from six months ago, there's definitely some positive progress. We remain cautious in our optimism, but there's enough good news here that we had to share with everyone. We definitely feel the power of your prayers at work here, along with good medicine, medicine, and spiritual attitude.

Marin's white blood cell level tested strong and she began her scheduled course of chemotherapy in the morning. She'll continue that through Saturday morning, and continue to get better.

Tuesday was also a special day for Marin on a social level. On the first day of school, and after doing her chemotherapy session, she arrived at a local pool to join her high school swim team! This is a big step for Marin as she was apprehensive about the concept while struggling with her self image when it comes to her swimming ability. We've been talking about this step for several weeks and we impressed upon her that the opportunity to be on a high school team comes and goes very quickly in a person's life, and that's where great friends are made. With an introduction to the team from her teacher Ashley, she wore a big smile on her face as she met the girls on the team and it was quickly apparent they were very happy to accept her. Then when the workout began, Marin busted out. She started out in lane one, the slowest, but quickly showed she has much more game than anyone would think. She was faster than expected, and moved out of lane one, through lane two, and finished the workout in lane three! She definitely inspired a few of her new teammates, two of whom commented after seeing Marin work that they would never complain again! It was a wonderful experience for everyone. It's going to be a fun season!

It will be tough to top a most memorable Tuesday, but Marin's ready to do it again Wednesday. Chemo in the morning, swimming in the afternoon, and school work in between. Thanks again to everyone for your love and support and sharing this big day with us.

More good times to come,

Marin, Nancy, Matt, Peach, Spiderman & Uncle Kelly


Tuesday, September 5, 2006 1:36 AM CDT


Even though it was a holiday, Marin was up & at 'em with a speech therapy session first thing in the morning. Something must be working there because at one point she yelled very loud for Dad to bring her a milk chaser for her Noni juice (that stuff doesn't go down very easy). Her volume was as loud as we've heard her in more than a year, and it was great to hear, even if she was being a bit insolent. Perhaps as payback, she did suffer from dizzy spells throughout the early part of the day. She took some medication for it, and like a trooper, she was able to make it to the pool for a good swim work out. In fact, Marin was out swimming Mom in their head to head work-out, with Marin's stamina really impressing her not-out-of-shape mother. Tomorrow, we're in for a new adventure in the pool and we're looking forward to telling everyone about it if all goes well.

It's an early-to-bed night as Marin has an appointment for her next MRI tomorrow morning at 7 am... that means an especially early wake up call. It also means Marin was already in bed when Matt's brother Uncle Kelly arrived for a visit this evening. Marin will be happy to see him in the morning. Oh wait, Kelly won't be up that early... so, sometime tomorrow.

We're expecting to go forward with her next round of chemotherapy beginning tomorrow, that's if all her blood levels and the MRI check out properly. Wish us luck and say a prayer and we'll let you know how it goes Tuesday.

Back to school,

Marin, Nancy, Matt, Cami, Michael & Uncle Kelly


Sunday, September 3, 2006 1:09 AM CDT


Marin enjoyed a wonderful sun-splashed Saturday, sleeping-in and having fun around the house 'old school', watching cartoons, etc. as she enjoyed french toast and Michael's jokes in the morning. Later in the day, we all went out to watch Cami play soccer; she joined a team for the first time in a couple years and it was great to see her get in on the action again. Marin enjoyed/endured the sunshine for several hours this afternoon, and seemed to really have a good time watching Cami do her thing. It was interesting to note that as we met new people, mostly the families of Cami's new teammates, that Marin was very easily conversing with lots of people, and without much indication of her general speech problems. It reinforced to us how much better she's getting, and how much she's capable of when she's not too concerned with 'performing' well. We were very proud of Cami, and very happy to see Marin enjoying her little sister's effort so much.

Looking forward to the remaining fun this holiday weekend,

Marin, Nancy, Matt, Bend it like Beckham & Mike


Thursday, August 31, 2006 11:52 PM CDT


Marin had kind of a disappointing Wednesday when she went to workout in the pool. After a good speech therapy session, she was excited about going swimming and then meeting Molly and coach Karen for lunch. But after her workout, Marin became very dizzy and couldn't make it to lunch. She felt very bad about having to cancel and it brought her down for the day. She did feel better after getting some medication and some rest, but she felt she let her friends down.

Today she was back up and working hard through speech therapy this morning, then back to the pool today. She felt better and didn't miss a beat. We're still waiting on her blood cell counts this week, but we're confident she'll have a good number. We have an MRI scheduled for next week and we're anticipating a chance to continue the attack on her tumor.

Have a good Friday,

Marin, Nancy, Matt, Cami & Mike


Wednesday, August 30, 2006 9:57 AM CDT


Speech therapy fist thing in the morning can be a little more challenging when Marin is still trying to finish breakfast, but she sure continues to give it her best. As she works hard to use complete sentences and boost her voice level, she's also inadvertantly inventing a form of her own sign language. It's not what her speech tharapist wants her to work on, but as she tries to communicate better, she tends to draw with her hands in the air, either spelling words or making pictures of what she's trying to get accross. I bring this up because it's actually quite funny to see, and the scary thing is, we're usually able to make out most of what she's trying to say! When Marin is relaxed and simply not 'thinking' about what she's trying to say, she is able to speak much better, but getting to that point where it all comes out easily is very difficult.

Tuesday she went swimming with the masters group and went through her work-out with Cami along side her. Peach has become quite a good swimmer and she sparks Marin's competitive juices by challenging her. After good work in the pool, she had blood levels drawn and the report from last week came back very positive as the white cell counts were much stronger and there should be no issues for the next round of chemo coming up in about a week. We'll see how the levels compare this week but the numbers last week have us feeling very confident. Now it'll be interesting to see the next MRI and what kind of reaction there may be to the slightly lower dose of temador she received last time.

Speech, swimming, blood work, then a good session with her teacher Ashley and Marin was plumb tuckered out. A full day of getting better, with more on Wednesday as she goes to a chiropractor to help with her hip that's been a bit off balance as she struggles with her right leg. We're hoping for some help.

Have a great Wenesday,

Marin, Nancy, Matt, Cami & Mike


Tuesday, August 29, 2006 10:51 AM CDT


After thoroughly showering off from our camping weekend, Marin had a great start to the week that began with a good therapy session with Sue from her school district. It had been most of the summer since they had seen each other and Sue was very impressed with Marin's progress. It's hard to see this when we work with Marin every day, but twice this week she's been complimented by therapists that she hadn't seen in a while. She really is moving better.

Marin's day was brightened when she received a package in the mail from her good swim bud Kathleen Hersey, who represented SwimAtlanta and team USA so well at the Nationals and Pan Pacific Championships. Kathleen sent Marin her Pan Pacific T-shirt that fits really nice and made Marin smile all afternoon. As teammates and competitors, Marin and Kathleen always had a very nice friendship. She's one of those swimmers that even her rivals appreciate because she's a sincerely good-hearted person and her kindness outshines even her awesome talent. The Hersey family has been wonderful in offering emotional support and it's been so terrific to see Kathleen break on the national scene and perform so well. Thank you Kathleen for your thoughtfulness!

Later Monday Marin spent some time in the sun before taking in a Mariners game at Safeco field. Hey, Seattle won their 5th game in a row! We appreciate the Mariners staff for coming through with tickets for this one.

Up & at 'em again on Tuesday,

Marin, Nancy, Matt, Cami & Spidey


Monday, August 28, 2006 0:18 AM CDT


Sorry we were out of touch for a few days there, but we took some time together as a family and went camping! Yes, it was a regular "Griswold's in the Wild" kind of adventure, but it was camping none the less. No internet, no cell phones, no showers, no food without dirt in it. To recap quickly, we decided to put our tent and camping equipment to use for the first time since we've been in the northwest and with summer slipping away, it might be the only time we'll be able to do it this year. So we hit the road and traveled through the Cascade Mountains in search of a campground. We actually tried in advance to reserve a site, but they need reservations at least five days in advance, so since most said first-come anyway, we went for it. Well, three campgrounds later, we finally did find an opening and we pitched our big tent. It was cool, but Mom was a little aggravated by our proximity to the freeway. Dad said pretend it's the sound of a big waterfall. We went to an outdoor ampitheater Friday night and watched a family movie, "Cheaper By The Dozen II" (not as bad the 2nd time around... or maybe because the ampitheater was farther from the freeway). When we returned, we stoked up the campfire and made 'smores (yummy, but not on Marin's macrobiotic diet... we gave her a cliff bar). Then we all piled in the tent and went to bed... notice I didn't say "to sleep"... the sound of the cars didn't exactly sooth us to slumberland like a waterfall, so we all woke up a little groggy Saturday morning. With fishing poles ready to go, we drove to a nearby lake to catch us some food, that's what we told Mike anyway, and after trying one very rocky beach, we found another very sandy beach where the sun worshipers drove right down to the water's edge to set up camp and slip their watercraft in to the lake. Indeed, this was cool, but Dad didn't quite realize that all the other vehicles on the beach had big tires, 4-wheel drive, and ground clearance, so getting our Honda van in, then out, required the assistance of several beer-guzzlers nearby. Heck, we even made friends with a 21-year old guy named "Dusty" who was inebriated at noon, accused Nancy of cheating at gin rummy, sweet-talked Marin, and threatened to ask her out on a date. In the meantime, Michael was becoming a professional-quality angler, casting his line time and again, and enjoying the working of a fishing pole. No bites, not even close, but we did have several dogs befriend us on the shore. Rosie was in her glory acting luck a tough marshmallow barking up a storm at all these big retrievers on the beach. After lots of sun, and more sand than we bargained for, we headed back for camp where we fired up the campfire again, cooked and ate lots of burgers and chile, and decided we didn't want to sleep on the side of the freeway again, so we packed up and bolted for home about the time we should have been going to bed. Good call. 32 hours in the wilderness was worth a lifetime of memories, and that was enough for this weekend.

Sunday was an enjoyable day that included getting together with Marin's friend Molly and seeing a movie. She's such a wonderful person and they hadn't spent much time together this summer, so it was great to go out, catch a movie, then eat dinner with her. Nothing but good times.

Have a great week ahead,

Marin, Nancy, Matt, Cami, Mike, & Rosie


Wednesday, August 23, 2006 11:48 PM CDT


Marin's rise & shine this morning turned out to be a false start as Dad woke her up at her usual somewhat early hour in order to get dressed and fed before therapy started at nine. One problem, no therapists on the schedule... DAAAD!!! Oh well, after a good big breakfast she went back to bed for a little snooze before heading off to the pool. Another good workout and Marin looks awfully good. Again, the swimming regimen is a great form of therapy for her and she's really in a groove with her routine.

In the meantime, she's working in her blood tests again this week and we're waiting to see how her white cells have reacted to her latest dose of temazolamide. The last treatment was a lower dose of the medication than in recent months, so it will be interesting to see how her system has reacted, with perhaps an inference on how the drug might be affecting her tumor. At this point it's a wait and see and we really won't anything until her next MRI in about three weeks. Until then, it's make the most of everyday, with the next project on the schedule a new paint job in Mikey's room (hint: red, blue, and spiderwebs!)

Over the hump this week,

Marin, Nancy, Matt, Cami & Michael


Wednesday, August 23, 2006 1:28 AM CDT


We can't express our appreciation enough for the good people at the Bellevue Club who've helped Marin immensely with their kindness and good will. Marin has been swimming regularly with the seniors group at lunch time for the past few months and the work-outs have truly been a great source of healing. Not only is Marin getting stronger every day, but her confidence is growing all the time. Coach Karen has been both nurturing and challenging in giving Marin her daily regimen that has really helped her. The Head Swim Caoch Klaus has been amazingly supportive, as has the administration and all the lifeguards, teammembers, and parents who've been so friendly along the way. We have a humble debt of gratitude for everyone at the club who've been such a big part of Marin's healing, in body, mind, and soul.

Thank you,

Marin, Nancy, Matt, Cami & Spidey


Sunday, August 20, 2006 11:46 PM CDT


An adventurous weekend finished with a fun Sunday as Marin had a great day. No therapy & such, but she did get out for some good exercise playing tennis with Cami & Mike. Cami's an ace, Mike's getting the hang of it, and Marin was very good using only her left arm. She always has had good hand-eye coordination, so it's not surprising that she was able to have a successful outing on the tennis court. It may not have been US Open quality tennis, indeed with Mike int he mix it resembled more of style of 'pick-up back alley' tennis, but it's the first time Marin's ventured out on the court in a long time, and it made her feel good to be out there having fun with her lil' sis & lil' bro.

After dinner she went out with our friend and neighbor Elizabeth & Naomi to go see the movie "Step Up" and she really enjoyed it. Marin likes almost any kind of movie, but she really has a soft spot for the romantic themed films. It was really neat that Naomi invited her out to this one. Monday it's back to the work schedule with rehab and such throughout the day. She's looking forward to it with energy and enthusiasm.

Hope you had a great weekend,

Marin, Nancy, Matt, Cami, & Michael


Saturday, August 19, 2006 9:38 PM CDT


Hello again, we hope everyone's enjoying your weekend wherever you may be. Taking advantage of the nice weather in the Northwest, the gang went to the beach today at Lake Washington and enjoyed a great day of sun and swimming. As she becomes more confident, Marin is asserting more independence, both in social settings and in her daily routine. For instance, she's doing a great job around the kitchen, fixing her own breakfast and cleaning up the dishes afterward, something she will take upon herself and surprise us when we're not expecting it. She truly is very hard-nosed about doing what she can without any assistance, as we can surely attest everytime she has to put on her shoes, sneakers with laces, and insists on tying them herself (try that using only your left hand!). Not to be overlooked is the always helpful attitude of Cami who did such a nice job on the journal when we couldn't, and worked har don painting the bedrooms with Miss Melissa. And of course the occasionally helpful but always cute contributions of Michael, who made himself a couple of new friends when Ashley's dogs visited today.

On a baseball note, we're sad to see Jamie Moyer traded from the Mariners to the Phillies tonight. Best of luck, Jamie!

Enjoy the rest of your weekend.

Marin, Nancy, Matt, Cami & Michael


Wednesday, August 16, 2006 2:08 PM CDT

Hello from the morrison bunch

we have had a wonderful week. Last Sunday we were able o "ride the ducks" in Seattle. The "duck" is what they call this military vehicle that is able to tour both land an water. We had a great time, and we got enjoy the presence of our friend Melissa.On Wednesday, my parents left for LA to enjoy a week alone. Mrs. Melissa is here with us and we have been as busy as ever. Wednesday night we started painting my room a very, very bright green that might require sunglasses to see. Yesterday, we got a head start on Marin's room and ended up finishing it last night. It used four colors: bubblegum pink, tart apple green, yellow, and a baby blue. We also were able to work on the bottom half of my room ( where Marin also shared her part in painting some brushstrokes). This morning, we moved everything back into marins room and as we busily worked on the rest of my room, we found Marin Cleaning up all her dishes, scrubbing them and putting them in the dishwasher. Mrs. Melissa became very excited. We just finised all the painting and rearanging in My room about an hour ago while Marin kept herself occupied with putting pictures up on her new bulliton board that I painted. elizabeth has been taking Marin to Swim practice everyday and thereapists continue to come in and out. she's very excited about her room and we've been doing everything to help, including the noni juice (uhh, it's sooo disgusting, and marin agrees), light thereapy, and those bags buldging with pills!

warmly,
Camie-, melissa, and morrison family


Friday, August 18, 2006 9:38 PM CDT


Thursday and Friday were a busy and productive days around the house as our ‘guest’ Melissa spearheaded a number of projects to help us get better settled in. Her eye for decoration already touched up the kitchen and living room and now she’s brought out the paint cans and made over the kid’s bedrooms. Marin absolutely loves her new look room and was thrilled to see the transformation. Four different colors on the four walls, with touches of decoration throughout. Camlyn also has fresh, colorful 2-tone paint job (primarily green of course) and she's as proud as she was helpful in the process. I’m not sure how ‘helpful’ Mike was, but he sure was proud to be a part of it, and his room is next. Cami on the other hand is showing the promise of a young Michaelangelo… quite a painter, and a big help on these projects.

Marin had a full day both Thhursday and Friday, beginning with speech therapy in the morning followed by workouts in the pool. This is the first time she’s worked with coach Karen in a little while and she always does so well throughout the day when she gets in a good swim. Later, she got down to business with Ashley for a few hours of school work while the ‘construction crew’ was buzzing around. Marin is feeling good and energized and it shows in her smile.

Always getting better,

Marin, Nancy, Matt, Camlyn, Spidey, & Melissa


Wednesday, August 16, 2006 10:39 PM CDT


With a smile and grace, Marin was up & at 'em today with lots of enthusiasm for getting better. Her chemotherapy through the weekend left her understandably a little worn out early this week, but today she took on a full load of therapy and school and still had enough energy to fool around with her little brother, even making a fort with Mike!

She's showing good progress in her speech therapy although it's been difficult to translate that into conversational speech. Nevertheless, in her work with Jessie she is proving that she has the ability to work the mechanisms for getting full sentences together and her progress is encouraging. Marin also worked well with her PT Debbie today again, as well as spent a few hours doing school work with Ashley. While the speech and reading, letters, words and sentences are difficult but do-able, it's clear how well her cognitive functioning is working when she digs in on her math. She is doing algebra problems without a hitch and she's really impressing Ashley with her work.

We're really enjoying having our friend Melissa with us this week as she's been a wonderful friend and energizing the household. She's put her magic touch on several projects and has given us a huge lift. Thanks Melissa!!

Getting better everyday,

Marin, Nancy, Matt, Camlyn, Mike & Melissa


Sunday, August 13, 2006 11:18 PM CDT


A spectacular Sunday in Seattle as we celebrate the final day of Marin's chemotherapy session for this month. Once again, she handled a couple needle probes before we found a gusher, but after that, it was only a matter of riding out the treatment. All good from the HemOnc clinic at Children's Hospital.

Afterward, we enjoyed the sunshine and rewarded Marin for her courage and grace with a nice lunch on the water and a day of sightseeing with our friend Melissa visiting from GA. The kids all really enjoyed a tour on the duck boat ride that showed off some of the beautiful sights around the city from the streets and from the water, including the houseboat from "Sleepless in Seattle", one of Marin's favorites. We were concerned about her stamina today, but she held up great and really enjoyed a fun afternoon, followed by a nice dinner at home, and as she was getting ready for bed, she was gifted by Melissa & Jen with a special pillow that holds her I-pod so she could listen to her tunes while she goes to sleep. Really cool! We hope everyone out there made the most of your weekend.

Enjoy your week ahead,

Marin, Nancy, Matt, Camie, Mikey & Melissa


Sunday, August 13, 2006 1:45 AM CDT


Through four days of chemotherapy Marin is doing great and with one to go she's all smiles. She has her routine down and the only variable is how easily the nurses are able to find a suitable vein to tap her each day. After so many false attempts with blood tests daily over the past couple of weeks, Marin's left arm at the inside of her elbow looks worse than either of Keith Richards' at the height of his junkie heyday. This morning, they had to call in an infusion specialist because the floor nurse just couldn't get a line in her vein after trying for a half hour. This has become the worst part of the process for Marin, but she still handles all the discomfort with amazing grace.

After her 2-half hour treatment, we rewarded her with an afternoon at her leisure. She opted for a sushi lunch at a neat little place we found near the hospital, then a stroll around a local mall in the beautiful Seattle sunshine. At one point, as Mom & Cami ducked in to a store for some shopping, Marin, Dad, and Mike played an intense game of 'tag'. It had to be very humorous for the passersby to see a four year old, a Dad, and a smiling hemi-palegic in a wheelchair chasing each other around a fountain, patio furniture, and potted plants in the mall common area. The great thing is, Marin was holding her own, maneuvering the chair with one foot while deftly dodging all obstacles in this game that went on for a long time. It was a lot of fun, and just to clarify, Marin rarely uses her wheelchair except on long outdoor excursions when fatigue would be a factor.

After wreaking havoc on local shoppers, we went for a couple hours int he sun at the local pool and then enjoyed a good dinner of salmon and salad with our cousins from Atlanta who just finished a cruise. It was great to see Eileen & Brad, Sarah & Bradley one more time before the traveled home to Hotlanta. Later, Nancy picked up our good friend Melissa from the airport as she's flown in for a week long visit. She been an unbelievable good friend through all of this at it's wonderful to see her.

Finally, Marin opened a package that arrived in the mail today and was moved to tears with a gift sent from her friend Molly, her mother Deb and her Grandma, all the way from New Hampshire. They must have heard that Marin collects Angel figurines, and they presented her with two lovely 'Willow Tree' angels that touched all of our hearts. The first is titled 'Courage', and is a figure of an angel with arms stretched out over her shoulders in triumph and confidence and to us it absolutely captures the spirit that Marin has shown through her ordeal. The other is titled 'Thinking of You', showing an angel with her hand on her heart listening with anticipation for a message in a conch shell, the symbolism perfect for the sentiment. Such a thoughtful present to Marin is a wonderful gesture to us all and we will cherish the gift always.

All in all, a pretty terrific Saturday,

Marin, Nancy, Matt, Camlyn, Michael & Miss Melissa


Thursday, August 10, 2006 6:30 PM CDT


Well, we did get the news we were looking for Wednesday when Marin's white cell count reached the level she needed and she began her next course of chemo. Because she's being given this medicine through a clinical trial, we were concerned that she could be expelled from the trial if she wasn't able to continue by the end of the week, so this is a big relief. As it was, her white cell count was just barely over the threshold, and the clinicians had to cut back on the dose of Temador she's receiving over the next five days.

In the meantime, Marin is still going strong wiht her speech, OT, and physical therapy as well as her schoolwork with Ashley. All her therapists report forward progress although the improvement is subtle, it's been steady. She's enjoying her work and is encouraged by her own progress. Reading the notes on her web page from friends and family is always a big encouragement, so thank you to everyone for contributing.

After her treatment today, she stopped off with Mom for a snack of sushi at a cool little place near the hospital. She's having a nice time this summer no matter what she has to deal with, and it's a joy to see her happy.

Getting better everyday,

Marin, Nancy, Matt, Cami & Mikey


Tuesday, August 8, 2006 1:34 AM CDT


Sorry to report once again that Marin's white cell count was still not high enough for her to start her chemotherapy today. While this was another disappointment, atleast we did see a significant jump in today's reading (over last Thursday) and the number is very close to the level she needs. So, Marin took another needle in her worn-out vein again today in what turned out to be a futile effort to get her moving forward, but as always she took it like a champ and will return Wednesday for another go at it (time for prayers and positive thinking!). We made the best of our trip to the hospital by going a few miles more in to downtown Seattle, getting a good sushi lunch at Pike Place market, picking up some beautiful flowers and a load of essiac tea, which is an herbal blend that many people testify has had a big affect on boosting the immune system. Has anyone reading this had an experience, or aware of anyone who has?

Without slowing down, Marin returned home for a OT session and then worked with her teacher Ashley this afternoon before crashing in a massive nap. After waking refreshed, she enjoyed some late afternoon sunshine (it's been beautiful here) and then watched a movie before trying out the essian tea and going to bed. Another day on the go, and we're looking ahead to tomorrow, and celebrating our 19th wedding anniversary with the whole family.

Cheers!

Marin, Nancy, Matt, Camlyn & Mike


Sunday, August 6, 2006 11:48 PM CDT


If the nice weather is any kind of omen, we should expect good news Monday morning when marin goes in for yet another blood test with the hopes of having the acceptable white cell level. Prayers on this would be really appreciated. It's been beautiful here for an eventful weekend as the annual 'Sea Fare' celebration stopped in Seattle. On Saturday afternoon, we went down to a local waterfront park to enjoy the sun and catch the Blue Angels do their very cool stunt flying. It was awesome! And in a very surreal moment, as five of the six jets flew over head in formation close enough for everyone to read the markings on the wings, the crowd on the park lawn broke out in a spontanious round of applause to show appreciation. Then only a few moments later, from across the small inlet near the park, a large bird leapt out from high in a tall pine tree and followed the same path over the top of us that the Blue Angels just had. As the majestic creature flew closer, growing even larger, we all saw that it was indeed and American Bald Eagle, flying free in the wild overhead, and everyone broke out in another round of applause! We've seen bald eagles before, but I believe it's the first time any of us have experienced that kind of collective reaction to an animal that wasn't trained in a circus.

Also this week, we've kept a close eye on all Marin's friends performing so well in big swim meets across the country. Marin has always idolized her SWAT teammate Amanda Weir (and even broke some of her age group records) and we were so proud to see that Amanda set a new American record inteh 100 freestyle in winning US Championship at the nationals in Irvine. Congratulations Amanda! And another high-five to Kathleen Hersey, Andrea Hupman, the Kukors sisters, and all the other GA and PNS swimmers who made such a great showing this week. We've also been rooting for Jordan and Erica at the southern Zone meet and are so proud of all these great swimmers.

With much appreciation, we're hearing reports of Super Marin t-shirts circulating from coast to coast, with at least one high school soccer star training in hers every morning, to another athlete sporting the Super-M with pride at an Outward Bound course in the Northeast. We're so thankful for the support and good friendships the Wave of Courage foundation has cultivated. Thanks Matt B.!

Monday morning it's back to Children's hospital for the all important blood test. Marin needs this medication this week, so a good word to the Good Lord in prayer Monday would be appreciated. Thanks to all.

Enjoying everyday as best we can,

Marin, Nancy, Matt, Cami & Mikey


Saturday, August 5, 2006 0:50 AM CDT


So with a little anxiety over Marin's white cell count the repercussions for her treatments, there's no use fretting for the weekend so we're moving forward. She continued with her therapy today, speech and swimming with coach Karen, then spent time sitting in the sun and just relaxing. We've been told her levels aren't low enough to allow the use of a boosting agent (within the parameters of the clinical trial) so all we can do over the next three days is make sure she gets plenty of good nutrition and rest.

It's been so great to hear from good friends through the website. Thanks for all the uplifting notes and prayers. Your support is so important to us and we truly appreciate it.

Have a great weekend... we will!

Marin, Nancy, Matt, Cami & Spidey


Friday, August 4, 2006 1:24 AM CDT


Well, I wish I could report better news from our Thursday trip to Children's Hospital, but the reality is Marin's white blood cell count has actually dropped, significantly, and thus we are still unable to begin her next course of chemotherapy. This is alarming because we are now getting well overdue from what is supposed to be a monthly schedule of treatment and we want to attack this tumor while we think we have it on the run. Right now, we're looking at ways to boost her white cell count beyond diet and to see if the clinical trial will make an exception to allow her the use of agents to get the level up to where it needs to be. We'll go back in Monday for another blood test with hopes that we'll have better results. In the meantime, we're tryng to stay positive and Marin is feeling good, so we're moving ahead with every expectation that she'll continue to win her struggle. We enjoyed a fun day with our visiting cousins and are looking forward to a fun weekend. Marin is loading up on supplements and other holistic medicines like Noni juice, which we've recently discovered and have read some very interesting things about it's healing properties. Everything's a possibility, and especially with Marin's positive demeanor.

Go SWAT & PNS at Nationals!

Marin, Nancy, Matt, Cami & Spidey
+ GA cousins


Wednesday, August 2, 2006 11:53 PM CDT


With a two-day break from any hospital visits, Marin returned to a normal routine for a time. Speech therapy in the morning today was nice for her because she hadn't seen her therapist Jessie in a few weeks and it was clear that Marin has formed a nice bond with her. They work so well together and Marin is able to speak in complete sentences easier with her, probably based on Jessie's technique, and her expectations.

After therapy it was off to the pool where she was happy to work out with coach Karen for only the second time in a week. Marin always has good days when she swims. We were happy to see how well some of Marin's swim pals are doing at the US Championships this week. Her good friend Kathleen Hersey and of course Amanda Weir from SwimAtlanta continue to make us so proud, and Ariana Kukors and her sister Emily from PNS doing great. It's AWESOME! Congratulations ladies. We'll be keeping an eye on the meet all week.

In the meantime, Marin is loading up on the good stuff with the expectations that her blood test tomorrow morning will show a healthy white cell count so she can start her next course of chemo. The longer this is delayed, the more anxious we get, but we're confident we'll get this underway Thursday. We'll keep you posted.

Keep on stroking,

Marin, Nancy, Matt, Cami & Spidey
+ cousins!


Monday, July 31, 2006 11:42 PM CDT


I guess we didn't feed Marin enough raspberries over the weekend becaus Monday's blood test didn't produce the results we needed. Her white cell count was still a bit under the threshold for her to get her next course of the clinical trial chemotherapy. Because this is a clinical trial, the parameters are very strict on when the medicine can be administered. So even as we are anxious to get her the next course, we can only wait a couple more days with the expectation that her white cell count will be up for another test on Thursday.

In the meantime, Marin continues to look and feel good. We were happy to see our cousins Eileen, Sarah, and Bradley arrive in Seattle for a visit this week and we're looking forward to some family fun over the next few days. Marin will work in some school and therapy, but she'll have plenty of time to enjoy with the cousins. in the meantime, it's build up the white cells with blueberries, raspberries, broccoli, etc. The macrobiotic diet isn't always wonderfully satisfying, but it's working!

We hope all is well with you,

Marin, Nancy, Matt, Cami & Mike,
with Eileen, Sarah & Bradley


Monday, July 31, 2006 1:32 AM CDT


Aloha from the Pacific Northwest,

It was a sleep-in Sunday as Marin adjusted back to the Pacific time zone, and since there were no classes on the schedule, and church was held in the evening, it was a good day to snooze as late as she wanted. Dad got up early and hit Costco for a smorgasbord of fresh fruit to stuff Marin with and get her blood counts up for her test first thing Monday morning. While eating a late breakfast, we enjoyed a good visit from our good old friend and neighbor from Jacksonville Dave Sullivan. He went on a poker cruise last week through Seattle, so we were glad to spend some time with him coming and going. Dave and his wife Marcia lived across the street from us in Jax and we've remained close now years after we've moved. A fine example of the many good friends and neighbors we feel connected to even as we no longer live in close proximity, we're all still close in our hearts. That's why reading these entries in Marin's guestbook everyday is so important to us, so therapeutic, knowing friends we've grown close to and cared about over the years don't go away just because one or another moves away. Believe me, when we hear from people like Marins swim teammates like Erica and Sarah, Pam Karlins, and neighbors Like Robin A. and Debbi O., it makes us feel happy and connected to all of you who are so important to us.

At our evening church service we met some new folks and enjoyed a good message underscored with some inspirational music that we all enjoyed and Marin in particular. She always smiles, sings, or hums when she, captured by the music and it's very rewarding to witnes how much she enjoys the simple melodies,

Please say a little extra prayer first thing Monday morning as we need a blood cell boost to continue with her course of treatment this week. Thanks for the power of your positive spiritual energy, we'll let you know how it goes.

In Him,

Marin, Nancy, Matt, Peach, Spidey, et.al


Sunday, July 30, 2006 0:08 AM CDT


Aloha,

Still in the Hawaiian spirit, even if the sunshine has vacated the northwest, Marin and the rest of us are making the most of an overcast weekend. While we try to boost her white blood cell count with healthy eats, we're enjoying a good time around the house that includes loads and loads of vacation laundry, plus the usual back-log of household chores. In Marin's case, she took on a couple hours of physical therapy Saturday morning with her PT Liz, and she may disagree but it was good to see Marin working hard and out of breath as she went through her tasks. We rewarded her later with a trip to the movies where we watched "Monster House" which gets a 'thumbs-up' from all of us (Michael trembled on Dad's lap through the beginning 1/3 of the movie, but then settled in and enjoyed it.

We're hoping Monday will be a better blood test day and that she can get started on chemo to continue killing the cancer cells. In the meantime, life is good and we're all thankful for each day.

Looking forward to Sunday,

Marin, Nancy, Matt, Camlyn, Spidey & pets


Friday, July 28, 2006 10:52 AM CDT


Home again, home again, jiggety-jog!
(one of Gramma Sharon's old-time sayings)

Mahalo, Kaui. The islanders arrived home Wednesday night at midnight after two amazing weeks in the Aloha state (thank you Gramma Shirley!!) The beautiful smiles of Nancy & the kids at the airport were accentuated by the deep, dark tan they all had been working so hard to acquire. Cami looks like Malibu Barbie with her coconut skin and long blonde hair, Michael's mop has lighened about three shades, Nancy looks absolutely gorgeous, and Marin has the deepest tan a scottish lass has ever had. Indeed at her accupuncture appointment Thursday, our alternative medicine specialist was amazed at Marin's skin tone... this woman is Indian and as she compared her dark complexion to Marin, the doctor was by far the lighter of the two. We'll try to hold on while we can, although the heat wave in Seattle is waning and we haven't seen the sun yet this morning. But it's coming! (optimist)

For Marin, there was no vacation 'sandwich' day... it was right back to business. She went in for an MRI Thursday morning and we were hoping the test would allow her to begin her next course of chemo right away. The good news is that the MRI was at least stable, meaning there was no tumor growth that we could see and as hard as we looked, I can't really say there was any reduction either. (No growth is good, reduction would be better, so prayers on this point would be appreciated). The bad news is that Marin's white blood cell levels were a little under the permissable number to allow her to go forward with her next phase of chemotherapy. Because of the paramaters of the clinical trial she's in, this is a strict guideline, so even though she's close, she'll have to wait until Monday with the hope that we can boost her white cell level over the weekend. This means lots of blueberries, respberries, broccoli & such, YUM!!!

Even with a busy hospital day, Marin had enough gusto for a late afternoon session with her teacher Ashley, who was excited to learn all her deep, dark, tanning secrets (sunshine really helps). Today, it's back to her rehab routine and life continues to be good.

Happy to be home & together,

Marin, Nancy, Matt, Camlyn & Spidey,
& Rosie (dog), Christie (bird), & Kiwi (hamster)
none of whom died on Dad's watch





Tuesday, July 25, 2006 0:42 AM CDT


We followed the Georgia Senior State Swimming Championships through the website and Marin was very excited to see so many of her good friends have a great weekend in the pool. Honestly, for us, it was kind of bittersweet to be following a big swim meet knowing Marin isn't able to compete at that level anymore, but to her credit, Marin doesn't seem to have any hard feelings. Instead, she's happy for her friends who are doing so well and it's fun for her to follow everyone's progress. She was so happy to see that SwimAtlanta won the meet and her good friends Jordan and Erica made the zone team again, along with Scott, Kyle, Anna G., Lindzi S. and the others. It was fun to see Abigail, Sarah, Erin, Kristine, Kaitlyn, Haley, Emma, Ali and of course Amanda Weir represented SWAT so well. Thanks everyone for the phone & e-mail updates, too.

On Kaui it was another day at the beach as everyone went to the tip of the island to enjoy Ka'A beach again. This is where there's a great reef to snorkel around and sea turtles are often swimming in close to shore. Marin has been having a terrific time with her cousins from California, particularly Katrina, who has been her "twin cousin" life-long soul sister. The visit has been wonderful and Marin's tan is a personal best! Soon it will be back home for a week of chemo, so in the meantime, it's sand, surf & sun.

Aloha everyone,

Marin, Nancy, Cami & Mike, Gramma Shirley, cousins,
Matt & Rosie,


Friday, July 21, 2006 3:17 AM CDT


Two weeks vacations are great, especially on a tropical island, but sometimes it's necessary to take a break from vacationing on vacation. Basicly, Marin was very tired today and we fully supported her need to sleep-in and just take it easy. There was very little running around, with swimming in the pool about the extent of the action. In the afternoon everyone went to a natural health seminar sponsored by the University of Hawaii. Marin, Cami & Mom have all had asthma over the years and were enlightened about some interesting remedies based on holistic methods and all are trying out an herbal 'patch' that's supposed to be effective for asthmatics. We'll keep you posted.

After the seminar, Marin opted for a good long nap and she actually snoozed until dinner time. After a good meal at a place called JJ's, it was off to another healing seminar based on the Xi Gong principles. Again, some very interesting information about the flow of energy and how to channel energy toward self-healing. We believe there are many approaches to wellness and any and all information and methods are worth considering.

We're looking forward to a well-rested remainder of our visit and we hope everyone back home has a wonderful weekend. We will!!

Marin, Nancy, Camlyn, Mikey & Gramma Shirley,
Matt & Rosie (our dog) @ home... + Salsa (hamster) & Christie (parakeet). Party On!


Thursday, July 20, 2006 0:59 AM CDT


It's so nice to read the great messages here everyday, hearing from wonderful friends and great family members from across the country. Marin is rooting for all her swim pals as everyone gets ready for the big state meet coming up. We'll be looking in on the web this weekend to follow along. Marin has been swimming "laps" up and down the shoreline this week to stay in shape, in addition to her snorkeling, which she is enjoying immensely with Michael, Cami, & Gramma. Today while driving on the island they were all enjoyed some fantstic scenery including waterfalls that were just spectacular. A day trip to Poipu beach was the perfect setting for dun, sand and snorkeling. It took a lot out of Marin who needed a good nap afterward, but she continues to feel good and is ahving a great time. We learned her white blood count is up in a normal range after her recent labs came back, so that's good news. She's going to enjoy the next week more than ever, with lots of cousins coming to visit, then it's back to Seattle for an MRI and presumably her next round of chemo.

Having fun and making it last,

Mrin, Nancy, Peach & Spidey, Gramma Shirley
Matt & Rosie


Monday, July 17, 2006 11:52 PM CDT


Aloha,

Marin my be the most tan she's ever been in her life. Sun worshipping definitely agrees with her and today was a great day for it. The gang traveled up to the north end of Kaui to a wonderful spot at Ka'a beach, one of the truly great beaches anywhere. After a terrific drive throught he lush countryside, past green pastures with horses and waterfalls tumbling high off the surrounding mountains, an afternoon of sun and surf was a great way to relax. Admittedly it wasn't all relaxing as Gramma didn't want to go to the beach and looking after three kids at the waterfront can be kind of tough. Marin and Michael both had a hard time maneuvering over some corral to go snorkeling so there was some stress, but all eventually made it in the water and swam with some sea turles and enjoyed some great snorkeling on the reef. Afterward, Marin was tired so while she napped, Cami, Mike & Mom went for a nice hike on the mountain surrounding the beach. It's a great spot and a fun time was had by all.

Hope you all are having a great time this summer,

Marin, Nancy, Camlyn, Michael & Gramma Shirley
Matt & Rosie (workin')


Sunday, July 16, 2006 11:41 PM CDT


Aloha,

The island life is definitely agreeing with Marin; she's been very happy, getting very tan, and eating very well while enjoying her time with Gramma. Lots of fun, yes, but she's also taking care of business as she's swimming both in the ocean for fun and in the pool for exercise. Today she spent a lot of time in the water with Michael and Cami snorkeling along the beach and swimming with schools of big, beautiful fish. Marin's been feeling really good and it shows. Everyone's having a great time eventhough we've had some rain but that's how it goes in the tropics!

We're looking forward to seeing cousins this week when some of our folks come to visit on Kaui. Marin loves seeing her cousins, especially Katrina, who'll be visiting from Southern California this week. Marin & Katrina have always been as close as sisters, they're 'twin cousins' and have always been great friends. We're all looking forward to a great week.

Hope yours is wonderful too,

Marin, Nancy, Cami, Spidey & Gramma Shirley
Matt & Rosie on the homefront


Sunday, July 16, 2006 1:01 AM CDT


Having a very nice time in the tropics and taking some time today to reflect on our family. This morning on Kaui, everyone gathered for a final memorial service for Grampa Jack who passed away this spring on the mainland, but a big piece of his heart was always in Kaui. With family and friends gathered, we enjoyed a nice ceremony with singing and hula dancing on the beach. The event was very happy, even for the children and it's a great way to pay tribute to a great guy. We'll always love you Jack.

Marin continues to feel good and is not getting cheated at all on this vacation. She's taking a lot of sun and snorkeling every day on the beach. Today was a little rainy but everyone still managed to have a good time, including a nice dinner in Princeville. The great fruit on the island is keeping Marin nourished and she's having a wonderful time with Cami & Mike, Gramma & Mom too. Wish you were here!

Aloha!

Marin, Nancy, Camlyn, Spidey & Gramma Shirley
Matt & Rosie


Saturday, July 15, 2006 7:44 PM CDT


Having a very nice time in the tropics and taking some time today to reflect on our family. This morning on Kaui, everyone gathered for a final memorial service for Grampa Jack who passed away this spring on the mainland, but a big piece of his heart was always in Kaui. With family and friends gathered, we enjoyed a nice ceremony with singing and hula dancing, then his ashes were spread on a beautiful secluded beach. The event was very happy, even for the children and it's a great way to pay tribute to a great guy. We'll always love you Jack.

Marin continues to feel good and is not getting cheated at all on this vacation. She's taking a lot of sun and snorkeling every day on the beach. The great fruit on the island is keeping her nourished and she's having a wonderful time with Cami & Mike, Gramma & Mom too. Wish you were here!

Aloha!

Marin, Nancy, Camlyn, Spidey & Gramma Shirley
Matt & Rosie


Wednesday, July 12, 2006 11:23 PM CDT


Aloha from Kaui!
After a good night's sleep, everyong woke up early (time change) and was excited to starting enjoying the island fun. Cami & Mike were the first ones in the water this morning and had a great time rolling in the waves off shore while snorkeling with tons of colorful fish. Marin didn't make it in the waves today because she was content to sit in the sun this morning, and by the time she wanted to try snorkeling later in the day, the conditions had changed and it was just too choppy for her to go in this afternoon. Still, there was plenty of fun as everybody enjoyed a mid-day hula dancing lesson at the local shopping grove then went to a nice dinner at one of the best restaurants on the island, 'The Bull Shed', where the food is great and the waves break right up against the windows. The first of many great days on vacation!

Enjoy everyday this summer,

Marin, Nancy, Cami, Spidey & Gramma Shirley
Matt & Rosie @ command central


Wednesday, July 12, 2006 9:28 AM CDT


Aloha from Kaui!! After a long day of travel that included a stop in San Francisco, Marin & company have arived in Kaui for a strong dose of summer fun. There's nothing Marin enjoys more than hang time at the beach and for the next couple of weeks, that's what it's all about! Gramma Shirley's hosting and spending time together will be wonderful for everyone. On our way to the airport we stopped off so Marin could have her blood drawn one more time here, and we'll do the same a few times at wilcox hospital in Kaui. Other than that, flights went smoothly, it was a long but uneventful day of travel and now it's time to relax!

Looking forward to the sun and surf, snorkeling, hiking, going to luaus, and spending time with Hawaiian cousins and others visiting from the mainland. We hope everyone is having a great summer and is able to enjoy some quality vacation time.

Aloha!

Marin, Nancy, Cami, Mike & Gramma Shirley
Matt & Rosie


Monday, July 10, 2006 11:20 PM CDT


Usually with a smile on her face, Marin continues to go about her business of getting better. Today she worked with her speech therapist Jessie over breakfast, then went to the pool with Dad, Cami & Mike to get in one more good workout with coach Karen before taking off on vacation for the next two weeks. Marin had a bit of a shock when she had to swim in the 'cold' pool today, but it did seem to spark her in to going faster! Later, she had a session of physical therapy at home, followed by school with Ashley, and she just keeps on ticking.

In the meantime, Marin's been packing for a trip to the beach where she'll relax in the sun for the next couple of weeks with Gramma Shirley hosting the family on vacation. The time off will be good for everyone and Marin is looking forward to some salt-water swimming as well as snorkeling, etc. She's packed her cute summer clothes and her stylish head gear for the trip and she's looking forward to spending quality time with her gramma and seeing cousins along the way. No doubt she'll still be doing her homework, even on vacation. Everyone's looking forward to a great time, and we'll keep you updated along the way.

We're very thankful this week to Marin's cousins dan and Justin who have both recently taken up large fundraising ventures by participating in endurance relays and getting friends and family to pledge funds to assist Marin. Her second cousin Charlie did the same thing earlier this spring with a swim-a-thon, and the efforts have been so important for Marin; she's still amazed that people want to help her so much that this inspires her as much as she inspires others. The synergy of all this good will and support is certainly helping her get better.

Hope continues to wear a smile,

Marin, Nancy, Matt, Camlyn & Mike


Sunday, July 9, 2006 0:47 AM CDT


For her showbiz debut, Marin was up earlier than anyone in the house... an amazing feat if you know how much she enjoys her snooze time (that's kind of a cheap shot since Marin was at one time up every morning at 5:30 am to go to school). Anyway, she was up early and stylin' in her nice clothes and fancy suede hat and ready to go by the time Ashley showed to pick her up at 8am. The two young women went downtown where Ashley's boyfriend was filming a corporate video for microsoft and they acted as extras in the spot. Lots of fun and excitement for Marin, and nice for us to see her go off without Mom or Dad for the first time in over a year, since she first became sick. It's a tribute to her own fierce independent nature as we've seen over the past many months as Marin always wants to do everything for hersel, and she can, even as we want to or try to help her, she insists on doing every task she can without assistance.

The film shoot was quite an experience, but by the end of a long morning Marin was feeling really dizzy. This was a disappointment because she had planned to go see "Pirates of the Caribbean" with Molly today, but she was unable to make it at the early afternoon time, and Molly had to work later, so the date was off. Marin was feeling better later in the day and was able to enjoy another day of beautiful sunshine. We really enjoy having Cami home as she tends to brighten up the household, not to mention give Mike a run for his money. For a second straight night, everyone enjoyed an evening by the fire pit roasting marshmallows and making 'smores. We hope all of you have a wonderful weekend.

Love,

Marin, Nancy, Matt, Cami & Mike.


Saturday, July 8, 2006 1:48 AM CDT

O.K., business first. Here is Aunt Cake-cake's broccoli soup receipe:

Carmelize 1 onion in butter (I use earth balance because it's non-dairy) chopped up in little pieces
Chop 1 or 2 garlic cloves in and stir
Stir in 2 boxes free-range organic chicken broth
Add a ton of fresh, organic broccoli and simmer for about 20 minutes (until broccoli is soft).
Puree in the blender and serve

Yum, Yum!!

Marin was very busy today starting at 9:00a.m. Jessie her speech therapist came and worked her hard. Marin then got ready and went swimming with Coach Karen and the masters. After swimming, marin came home and had a session with both her occupational therapist and her physical therapist. Ashley then arrived and worked with Marin for 2 hours. Right when ashley left we got ready and went to a Lourdes reunion.

The reunion was down by the water in Seattle. The people that were chosen to go as milads to Lourdes, France were all there excluding Tim (marin's friend that fought in Iraq) because he had his leg amputated yesterday. Please pray for Tim and his recovery. Marin got herself fixed up so cute, make-up and all and enjoyed so much being around not only the others that were sick, but all those who made it possible for us to go. I thought so would be exhausted from the day but she was still going full force when we got home.

Tomorrow morning her teacher, Ashley, is going to pick her up at 8:00a.m. to go be in a video shoot for microsoft. Ashley's boyfriend, Fred, produces these short videos and Ashley invited Marin to go along. This is the first of very few things I have allowed Marin to go on with out me. Ashley is one of the few people I would let her go with. She's around her almost everyday though and I think feels pretty comfortable with Marin. I'm excited for Marin to get out without dear old Mom. Imagine being 16 and having to hang out with your MOM all the time! I'll let you know how it went.

I hope everyone is sleeping soundly all over the world. God is good to most of us. Keep the faith strong.

Sweet dreams,

Marin, nancy

matt, michael and my Peach, Cami


Thursday, July 6, 2006 1:29 AM CDT

Busy day today and Marin came through it with flying colors. A poem stands out that I think of when I look at Marin. "To achieve all that is possible, you must attempt the impossible. To be as much as you can be, you must dream of being more. Your dream is the promise of all you can become."

Marin looks at everything as possible. That's what it takes.

Today her line up consisted of Speech Therapy, Swimming, Ocupational Therapy, and Ashley is back from a two week vacation!! Marin's anticipation of Ashley being back today kept her going with full energy all day. As I have said so many times, we are so blessed to have Ashley.

As I mentioned Marin now memorizing her address and phone number, both Jessie her speech therapist and Ashley asked her what they were today. Boy was she proud when she could remember them. It seems like such a silly thing, but it shows how her short term memory is slowly starting to show signs of recovery. (also, I have kinda laughed about the fact that if she got lost, she couldn't tell anyone where she lived or her phone number)

Matt's sister Kathleen showed me how to make broccoli soup so I have made it everyday since she's left. Marin welcomes the soup so she doesn't have to eat big piles of broccoli daily. It's funny, but Michael absolutely loves broccoli now. I gave him a giant plate of it tonight and he scarfed it down. Speaking of broccoli, Cami is coming home from Atlanta tomorrow. As she refers to it, "back to the broccoli fest." Hey, I read an article that if you eat broccoli 4-5 days per week, it cuts your chances of getting cancer by 50%!!! That is tremendous. So everyone, eat your broccoli!

Please keep those updates on the latest information on curing brain cancer coming. Information is power. Also, the prayers are working so keep them coming also.

Thanks for helping us find joy in each day as we plug along.

We lost our sun today and it was quite cold. Tomorrow we are hoping for the beautiful sunshine again.

Up too late,

Marin and Mom nancy

matt, michael, and Cami soon



Tuesday, July 4, 2006 11:17 PM CDT

Happy 4th of July!! We are just getting ready to head down the hill to watch some fireworks. We have had a quiet, peaceful 4th. Marin continues to be doing very well.

Marin didn't have any therapy today due to the holiday. We did go swimming though and marin swam with the masters. We arrived pretty late but Coach Karen still gave her a great workout. We then went out to lunch and walked around a little lake by the restaurant. Marin was feeling tired after all this so we came home for her to nap, eat dinner, and we're about to be off again. We have been getting rain for the past hour. First day of rain since Marin's birthday.

I am so proud of Marin and how she handles so much. Today she was smiling, laughing, and telling me a lot of stories. It was fun.

We better get going so that our spot in the Dairy Queen parking lot doesn't get taken!

fireworks to you,

Marin

Nancy, Matt, Michael and love to my "Peach"


Tuesday, July 4, 2006 11:17 PM CDT

Happy 4th of July!! We are just getting ready to head down the hill to watch some fireworks. We have had a quiet, peaceful 4th. Marin continues to be doing very well.

Marin didn't have any therapy today due to the holiday. We did go swimming though and marin swam with the masters. We arrived pretty late but Coach Karen still gave her a great workout. We then went out to lunch and walked around a little lake by the restaurant. Marin was feeling tired after all this so we came home for her to nap, eat dinner, and we're about to be off again. We have been getting rain for the past hour. First day of rain since Marin's birthday.

I am so proud of Marin and how she handles so much. Today she was smiling, laughing, and telling me a lot of stories. It was fun.

We better get going so that our spot in the Dairy Queen parking lot doesn't get taken!

fireworks to you,

Marin

Nancy, Matt, Michael and love to my "Peach"


Tuesday, July 4, 2006 0:18 AM CDT

Another great day for Marin.

She slept until 8:55a.m. and had to be woken up for her 9:00a.m. apt. with Jessie her speech teacher. Jessie allows Marin to eat and drink during her therapy so all is well. Marin continues to excel at her speech with more and more sentences being used in her conversations. Today when I took her to get her blood drawn she wanted to go in by herself. When she returned to the car, she told me there was a different lady working there. Marin managed to tell her her name, date of birth, address and phone number. (This is an monumental thing!) When she returned to the car, she was beeming and told me the story. Baby steps and celebrations for each one.

We also went swimming. Marin worked really hard today and enjoyed her workout. She met again one of the girls that came over on her birthday night and decorated. She also spoke with the young lady's mom who knitted Marin the cutest hat when we first arrived here. It's great for me to stand on the side lines and watch Marin engage in conversation and enjoying it. The people at the BAC have gone above and beyond what anyone could ask for. Frankly, I don't know how Marin would be surviving without them right now. They welcome her with open arms, make her feel special, and a few of swimmers continue to build a friendship with her. Her inability to engage in conversation all the time, me being an emotional basket case, and they keep calling, smiling, and welcoming us. Truely amazing people!

Thanks also to ya' all in Atlanta for greeting Cami with open arms. I know she is having a ball and is feeling lots of love. This whole thing can only be really hard on her also. She is a wonderful young lady, with so many talents. I often feel her not getting the attention she needs at such an important time in her life. I'm giving everything I have right now, I just feel like it's not much. Anyway, I know she's loving it.

When we got home from swimming Marin was pretty tired and took a 3 hour nap. When she woke up we had a quiet dinner and lit a fire in our back yard pit. Michael entertained us with all the silly games that 4 year olds come up with. We feel so very blessed for days such as today and for all the undying support. I continue to search for new information regarding curing Marin and welcome any and all information anyone hears regarding brain tumors. I don't know what God's ultimate plan is but I am praying with all my might that it is to cure and let my beautiful daughter live an long and happy life.

Another holiday approaches us tomorrow and Marin is living and thriving through it. Praise God!

Listening to fireworks in the distant,

Marin

Nancy, Matt, Michael (and sending kisses to my "Peach" Cami)


Sunday, July 2, 2006 11:08 PM CDT


We really have the feeling that everything is going in the right direction for Marin. Her MRI showed improvement, her chemotherapy went well, she's been happy and enjoying herself, and the weather has been terrific. Every morning we walk out our front door and Marin's still able to read the great birthday messages that were written in chalk all over our front walk and driveway... it hasn't rained since her birthday June 19th and Marin gets a big kick out seeing the decorations on a daily basis.

For the second time in three days, we went to the Mariners game and had a good time in the sunshine. Safeco field is a beautiful stadium and Marin has really gotten in to baseball (good thing for Dad!). Afterward, we went down to the waterfront in Seattle and enjoyed some great seafood. A fun day, yes, topped off with an hour of homework (are you reading this Ashley?) after we returned home. We're missing Camie & can't wait to see her at the end of the week. In the meantime, we're looking forward to the 4th of July. Happy Independence Day everyone!

Marin, Nancy, Matt, Camie in GA, & Spidey


Saturday, July 1, 2006 10:36 PM CDT


The locals in the Northwest have a saying that Summer starts July 5th, but it certainly seems that it's come early this year. The weather has been terrific here for more than a week and we've all been enjoying the sunshine together. Marin has a pretty good base tan going and she's enjoyed laying out at a local pool we've found near our home.

Other than a couple of dizzy spells that lasted only a short time, Marin's week of chemotherapy went very smooth. Her attitude all week was terrific, and was lifted every day with the visit from Aunt Cake & the cousins and with the arrival of various well-wishes and late arriving birthday cards. Marin loves the movies and she was so excited to receive some blockbuster gift cards from our cousin Megan and Justin. We also went out to see "The Devil Wears Prada", this summer's ultimate chick-flick, and it was thoroughly enjoyed by everyone, including Dad, who was chastised as the only man to walk out of the theater. It was a good movie with a thoughtful plot and strong performances from Meryl Streep as well as Anne Hathaway. We're only sorry we went to see this one without Camie, who's enjoying her visit to Georgia this week. Camie went back to see her old pals and swim with her summer swim team in a meet and all she did was win three events! That's our Peach! We miss you!

Enjoying the sunshine,

Marin, Nancy, Matt, Camie & Spidey


Saturday, July 1, 2006 1:18 AM CDT

Go Mariners!! We have just arrived home from a baseball game. The Mariners didn't win but it was fun hanging out with the cousins their last night here. It was baseball card trading night and all the kids got some great cards tonight. Marin even collected a few and got a kick out of it.

This morning Marin woke up at 8:55 and Jessie her speech teacher arrived at 9:00. Jessie's really good about letting Marin eat and wake up during their session. Remarkably, Marin does really well this way. Jessie is making her talk in more complete sentences and so we all have jumped on board with trying to get her to do this. Up until this point, she gives one word and lets us fill in the blanks.

After speech, Marin sat in the sun in the yard for a little. She felt kinda nausiated and did throw-up a few times this morning so we skipped swimming. We only think that this is the chemo working so we welcome when this happens. Marin took a long nap this afternoon after eating homemade broccoli soup that Aunt Kathleen gave us the receipe for. It is yummy! (really!!)

The weather here continues to be beautiful. Warm, slight breeze, with cooler temps in the evening. I'm glad it cools off in the evening because we don't have air-conditioning in the house. Moving from Atlanta, that sounds completely crazy but apparently, most all houses here are built without air because you need it very rarely. So far, we have survived without it.

Marin's overall progress continues to improve daily. I was sitting, looking at her at the game, and she looks a lot like she did before this whole fiasco started. Well, a lot leaner, has to wear a hat, but looks healthy. I know she is a miracle in the works, it's so obvious looking at her. Hopefully she will continue to become more comfortable with herself and get out to see people more. I don't push her, but simply give her the time she needs. Thanks to all of you for understanding this. We appreciate everthing soooooooo much, no matter how small, and we hope all of you know this. We will continue to fight on, smile, and thank God for that beautiful sunshine.

Sweet dreams,

marin

nancy, matt, spidey
(missing my cami in Atlanta)


Friday, June 30, 2006 0:38 AM CDT


Even when you feel your perspective on life is pretty good, some things an outsider might observe can really strengthen your resolve. Marin's aunt Kathleen has been visiting this week (Aunt Cake-cake as Marin dubbed her when she was two) along with cousins Eli, Miranda, and Owen. We've all enjoyed some good quality time with each other and something Kathleen said today was very reinforcing. She talked about how well Marin was able to interact with everyone despite her speech limitations and she was just surprised at how well she was doing overall. Hearing this gives us reason to pause and appreciate all Marin's hard work (and our own), and the importance of faith in our daily lives. Marin IS doing better, and it's the cumulation of so many factors; faith hope and prayer, good medical attention, people who've helped is keep going, day to day effort, and Marin's strong will, attitude and desire. It's important now and then to stop and appreciate what we have.

Have a great Friday,

Marin, Nancy, Matt, Camie in GA, Mikey
& Aunt Cake, Eli, Miranda & Owen


Thursday, June 29, 2006 0:30 AM CDT


Well Marin has reached the end of another round of chemotherapy with optimisn and a smile. The inside of her left elbow was abused like a pin cushion for five straight days as she started each session with an IV. Two and a half hours every day and no complaints, or even ill effects for Marin. In fact, she went for a good swim workout before her final session Wednesday, came home and enjoyed lots of laughs with her visiting cousins and went to bed happy.

We examined the MRI closely with comparisons to last months and the last six months and it certainly does appear as though we're seeing some reduction in the cancerous cell activity. Cautiously optimistic is how we'll term this. There's concern, however, over what appears to be some fluid build-up in the surgical cavity so we'll be monitoring this closely. We'll pray the latest chemo treatment continues to kill cancer cells. In the meantime, Marin looks and feels good and we have so much to be thankful for as she's been able to enjoy some beautiful weather we've been having lately, as well as our family and friends who've been visiting this month.

Enjoying June,

Marin, Nancy, Matt, Camie in GA, Mikey,
along with Aunt Cake-cake, Eli, Miranda & Owen


Wednesday, June 28, 2006 0:47 AM CDT

Hi. I'm sorry we've been flaky these last few days with updates. The days are so long here with daylight not ending until about 10:00p.m. With summer starting and daylight so long, by the time I get everyone to bed and sit down at the computer, I'm exhausted and think "I'll do it first thing in the morning." Well, you know how that goes. Anyway, Marin is doing good and plugging away with chemo only one more day to go.

We got to look at the MRI today and compare it to a January scan. The tumor looks like it has shrunk since then. Now a new problem is arising. There is a cyst growing in the space that part of the tumor was taken out. It's a lot better than the tumor growing there, yet it tends to be a little worrysome to me. Marin's oncologist is going to present the scans to the tumor board tomorrow and see what they think. For now, he feels it's fine. We need to pray it doesn't continue to grow because then they would have to drain it. I'm not sure how they would do that. Lets keep on the path of the miracle and hope everything is gone by the next scan.

Yesterday Marin got to swim and it was great for her. Karen her coach had me swim in the lane with her and took some photos of us together. Marin then wanted to have me take photos of her doing each stroke so she could look at them and critique her strokes. When we got home we were hanging out with the cousins and showing them various gifts that Marin has received. We pulled out a t-shirt that Mark Henderson sent Marin from USA swimming with all olympic medalist people who have signed it. Several of them are paraolympic athletes. I explained to Marin that she too can continue to compete with awesome athletes in this relm. She's accepting more her condition (as we all are) and warming up to this idea more than before.

Marin was pretty tired today and we didn't make it to chemo until almost 4:00. They were upset with us but oh well. I let her rest until she felt better and let her sit in the sun a little also. I feel it's important to have daily joys in her life. Since she missed swimming due to being so tired, she needed a little happiness.

After chemo, we met Matt's sister, her three children, and Matt for some sushi. The sushi bar was cool with little plates rotating around and you simply take what looks good. We then went home and made a little fire in our back yard pit and made smores. Marin cooked a lot of marshmellows but didn't eat any. The news of the tumor being smaller really made her happy and I think it gave her a new reason to keep fighting.

Marin and I are sorry for being flaky with returning calls and getting together with people these last few days. It's really mentally hard going through chemo everytime, even when she's not feeling sick. It simply overtakes everything that is going on and consumes us. We love each and everyone of you so much and rely on your support. We are trying to be as together as possible yet it sometimes seems to me we are so far from being together.

Keep smiling, enjoying every day of your life. I am certainly enjoying every day that I get to hang out with Marin. She is such a sweet person and a joy to be around.

Right before Marin went to bed, we were sitting around the fire, looking up at the stars. When it is clear here, the stars are spectacular! She was so happy and peaceful.

Here's to many stars shining down on you.

Marin

Nancy, Matt, spidey, (Cami in Atlanta)
Aunt Cake-cake, Elias, Miranda, and Owen


Monday, June 26, 2006 2:12 AM CDT

Day two of chemo and we're cruising. Marin has had a great two days. Even though she has been getting chemo, she's been feeling great, happy, and thriving. I think the sun arriving here in Seattle has put a smile on her face. We sure are happy about the sun.

We have been laying in the sun and swimming after chemo. Marin hasn't been swimming laps but has been soaking up the rays. She did get to swim 3 days last week. She wants to stick with swimming with Karen and her masters so when they don't have practice, she just enjoys the atmosphere!

Today her Aunt Kathleen, Cousins Elias, Miranda, and Owen arrived. They drove up from Northern California. Marin is so happy to have them here to hang out with. My brother Hal also showed up. He's here from Southern Calif. for business. It's great having him here too.

Matt set up our tent in the back yard and he's sleeping out there with all the kids. Marin and I are here in the house in our cozy beds. Camlyn is back in Atlanta visiting all our friends. We miss her tons but I'm sure she's having a great time.

The MRI they did on Friday showed the tumor being stable. I think it needs to start shrinking. It's been stable for 4 months now which is great yet if it's dying, it needs to start shrinking. Lets all pray really hard for that darn tumor to shrink up and go away!!!

Marin is looking really good lately and is conversing a lot better. She enjoys talking with people even though her speech is so limited. It anyone is thinking about calling her and talking, don't hesitate to do so. She enjoys phone calls and reminising with people.

We are so glad that we are having summer now too along with the rest of you.

Happy day, Marin

Nancy, Matt, Michael (and Camlyn from afar)


Saturday, June 24, 2006 0:41 AM CDT


Indeed, Summer's here and the time is right...
A spectacular day here in the northwest made up for a long day spent mostly indoors at Children's Hospital. After a speech therapy, Marin did work in a quick 20-minutes in the pool before heading in for the MRI. Because we didn't actually get in to the machine until late in the afternoon, we didn't get an official reading but her neuro-oncologist called later in the evening to atleast say he expected no problems because anything alarming would warrant at least a heads-up phone call from the radiologist tonight... still, it's a little unsettling going to sleep without a firm understanding of the latest pictures, but we're scheduled to go forward with the next round of chemo Saturday morning, and out gut feeling remains that Marin is ever improving.

We said so long to our Peach for a couple weeks as Camie went to visit friends in Georgia. She was super excited to spend time with her friend Jen and all her great pals back in the old neighborhood. Marin is going to miss her little sis a lot and when we were talking about it after dinner on the back porch, we wondered if maybe we should have sent Marin for a week too. We asked her is she'd like to go back and visit for a swim meet, but Marin said no, not now. She said she'd be crying, just too emotional for that kind of experience right now. We know how much she misses her friends as she looks at pictures and enjoys them so much.

Gramma Shirley's gone home and we're looking forward to cousins visiting this weekend along with a surprise visit from Nancy's brother Hal. We're busy as ever in the summertime... stop by if you can!

Relishing the sunshine,

Marin, Nancy, Matt, Cami in Georgia, Spidey & Rosie


Friday, June 23, 2006 1:38 AM CDT


With her birthday well-wishes remaining all around the house, Marin has been floating through the week on a wave of good cheer. She enjoyed another good day as she spent the morning working on speech therapy, then hit the pool for a good mid day workout. Marin seems to have more energy and spark on the days she swims, and it's clear the pool is her best therapy for body, mind & spirit.

We're gearing up for another round of treatment beginning with an MRI on Friday followed, probably, by five days of chemo. Please say a little extra prayer for good news out of the MRI. We feel very hopefull that we're on the right path as Marin looks and feels better every week.

We've had a great visit from Gramma Shirley this week and we're looking forward to having cousins Eli, Miranda and Owen this weekend along with Aunt Cake.

Kickin' into the summertime mode,

Marin, Nancy, Matt, Cam, Spidey & Gramma Shirley


Thursday, June 22, 2006 2:17 AM CDT


With her birthday well-wishes remaining all around the house, Marin has been floating through the week on a wave of good cheer. She enjoyed another good day as she spent the morning working on speech therapy, then hit the pool for a good mid day workout. Marin seems to have more energy and spark on the days she swims, and it's clear the pool is her best therapy for body, mind & spirit.

We're gearing up for another round of treatment beginning with an MRI on Friday followed, probably, by five days of chemo. Please say a little extra prayer for good news out of the MRI. We feel very hopefull that we're on the right path as Marin looks and feels better every week.

We've had a great visit from Gramma Shirley this week and we're looking forward to having cousins Eli, Miranda and Owen this weekend along with Aunt Cake.

Kickin' into the summertime mode,

Marin, Nancy, Matt, Cam, Spidey & Gramma Shirley


Wednesday, June 21, 2006 0:20 AM CDT

Good evening. We now have a 16 year old living in the house! Believe it or not, but Marin looks older today.

We had another good day with one down side, we didn't make it to the pool. We are both feeling that our therapy needs to take a new turn. This morning the PT came, and Marin got dizzy. Marin wants to swim daily and has been getting dizzy a lot during therapy preventing her from being able to go. We are going to have to schedule it later on in the day so that it won't interfere.

We did have a wonderful visit from a dear friend she made at Lourdes. Tim and Ashley are a young couple we met in France who really touched our hearts. They remind me of Matt and myself 19 years ago when we experienced "young love." Marin was drawn to their kind and fun spirit and they really made her Lourdes trip extra special. They live in the Seattle area and came to see Marin today. We hung out on the "big, cozy couch" upstairs because Marin was a little dizzy but had a a great chat and played some cards. I fell short of being a good hostess offering them mearly bread and water. (oh, and pretzels too!) Anyway, it was a great visit and it really made Marin happy.

The birthday celebrating continues with Grandma Shirley still here and more cards and gifts for Marin to open. Her reading has improved a great deal and I have been making her read every card and note to me.

Marin just got in bed a short time ago and was glowing with happiness. She demonstrated to me how her ankle continues to show more movement. She then said next she's going to get her wrist and her fingers to work! That would be a true miracle!!! She scooted herself into her bed, pulled her covers up over her, smiled big and said, "ahh, this is good!" I always have to leave the room when she acts so brave, because I fall apart at the sight of her unbreakable spirit, strength, and drive to push on. She is such an insiration to me and I know how all of you feel. We are all so lucky to have Marin a part of our lives.

May the sunshine fill your day up as the sunshine Marin gives off fills up mine.

Fondly, Marin

Nancy, Matt, Camlyn, Michael, and Grandma Shirley


Monday, June 19, 2006 11:27 PM CDT


It's was a very special Sweet 16 for Marin and our entire family. We wrote about the surprise from friends last night, and the celebration continued in a parade of visits abd hugs from good friends and neighbors all day. Phone calls, cards, and gifts arriving were essentially non-stop, and the volume of Birthday greetings here on her web site was staggering. The truly amazing aspect of all of this was to know how many people truly care and love Marin. There's no doubt that this is the positive energy that is having such a great affect on her recovery. We have to extend a blanket THANK YOU!! to all of you here as trying to do so individually will take months.

Marin was absolutely glowing from the serenade by friends last night throughout the entire day today. She was moved to tears when her swim team pals from SWAT called to sing Happy Birthday over the phone. A number of family and friends did the same, some leaving their message in song on our answering machine for classic playback (& I must say, Simon Cowell would have a field day). We went downtown as a family because Marin wanted to spend the day Seattle where we went to the top of the Space Needle and then went out for Sushi. It was a terrific birthday and we were so happy that so many of you shared it with us in spirit.

Make tomorrow just as wonderful,

Marin, Nancy, Matt, Camlyn, Mikey & Gramma Shirley


Monday, June 19, 2006 2:40 AM CDT


What a very special Father's Day it's been as the meaning of this celebration affects us in a way we might never have fathomed. There was a time not too long ago when I feared Marin might not be with us to enjoy this day, and so the simple act of hugging her, and Camie and Michael as well, has made this an incredibly special Father's Day.

Our joy is even greater Monday as Marin celebrates her 16th birthday. On Sunday evening, we were moved to tears as a gathering of angels arrived at our home and quietly decorated the front sidewalk, driveway and street with chalk art, big balloons and flowers as a special birthday surprise. The effort was organized by Marin's friend Molly and her mother and included her swim coach Karen and members of the Bellevue swim team, friends Ilona and Chris, Jeff, Kerri, Kate and Analies and Noami & Elizabeth from our nieghborhood and all were wearing "SuperMarin" t-shirts. As Marin was getting ready to go to bed we told her to step out front for something she had to see. The entire group starting singing to her and the scene was just beautiful. Marin was so surprised and moved to tears. It was an absolutely wonderful gesture that we'll never forget.

We have more of a celebration scheduled for Monday and Marin is excited about opening some gifts sent in the mail, especially a box from her great swim bud Sarah Looney in Atlanta. Thank you for remembering Marin and praying for her on her 'Sweet 16th'.

From Father's Day to Birthday, let the celebration ride,

Marin & Matt, Nancy, Camlyn, Spidey, & Gramma Shirley


Saturday, June 17, 2006 0:16 AM CDT

Friday, Last day of school. Well, actually, Ashley will be coming all summer but it was Camlyn's last day. She did well once again pulling out all "A's," made some good friends, and has adjusted well. It definately did not seem like the last day of school to me with the cold wind blowing and the rain.

Marin had a great day. She started out dizzy this morning but went back to bed and woke up again feeling fine. We didn't go swimming but sat in the back and played cards with Grandma for a few hours. The weather started clearing up and we experienced some blue skies.

We're still having issues with Marin's brace. We have the new "toe-off" brace to try but Marin can't even walk in it. Another company made another one and and it hurts her. I hope we can find something that is comfortable that Marin can walk in. You know how it goes with things, if it isn't one thing, it's another!

We hope everyone had a great day. We look forward to tomorrow and reading all those enjoyable messages. Thanks so much for the e-cards, cards, and gifts for Marin.
We also love all the suggestions for various different things!

Until we meet again,
Marin

Nancy, Matt, Camlyn, and Michael, and Grandma Shirley


Friday, June 16, 2006 3:04 AM CDT


Starting out the day getting stuck with a dozen needles doesn't sound like much fun, and the sticking part wasn't, but once they're in, it's all good. Marin had her weekly accupuncture appointment today and reported she felt good afterward. Even better after a stop at a local coffee shop for her favorite beverage treat; a decaf, sugar-free, vanilla soy latte. Marin gets a big kick out of kicking back with one of those. While on the subject, I heard a good one today, credit Dennis Miller: "We understand that Starbucks is now going to be putting a Starbucks inside every Starbucks" (assist from uncle Mike Schwartz). We heard good news that Grumpy is doing better and is out of the hospital after his stroke and is in a rehab facility for now. He takes after Marin in his positive attitude.

After accupuncture and coffee, the ladies spent some time down at Pike's Place Market in downtown Seattle getting some fresh flowers for a visit from Gramma Shirley. And while down there, might as well get some sushi. A good day all around, with Marin looking cute in some new clothes she recently bought and Gramma flying in tonight. We're looking forward to a fun birthday weekend

Love to all,

Marin, Nancy, Matt, Camlyn, Spidey & Gramma Shirley


Thursday, June 15, 2006 0:22 AM CDT

We're back!! My internet went down yesterday morning and we just got it back working this evening. Marin and I were going crazy not being able to read the fresh messages. See, you all depend on us writing and we depend on you for writing.

Anyway, starting from yesterday morning. Camlyn had a lunch thing at her school and myself, Marin, Michael, and his friend Tanner went and ate with Camlyn. It was fun. Marin really enjoyed talking with Camlyn's friend's moms. They are all so nice to Marin and really make her feel special.

Not to much else went on yesterday except Ashley ending Marin's day with smiles and laughter.

Today we had a busy day. We went and tried out the Toe-off brace that was suggested to us. We're not sure if it will work with Marin or not. The man is going to let us "borrow" one for a week without charging us and see how she does. My work tomorrow is to get the insurance to cover it. She seemed pretty excited about it yet it doesn't give her the support the big, plastic AFO does. Hopefullly, she will get used to it and it will work out. After that we went shopping and picked up a few new shirts for her. We then went swimming with Coach Karen and her masters program. Not only is Karen a great coach for Marin, she is becoming a good friend to me. After swimming Marin had OT both from school and the rehab facility, then Ashley. The OT from school, Sue, brought a receipe for Brownies that Marin can eat! Marin was very excited and they are going to bake them together next week. Thanks for all the cheery notes regarding the rain. By the way, it has been rainy and cold for the last two days. We are letting the sun shine here in the house and hopefully we'll give off enough rays of sunshine that it will start outside too.

Keeping sunny dispositions,
marin (almost 16! 5 days)

Nancy, matt, Camlyn, and Michael


Tuesday, June 13, 2006 10:08 AM CDT

I was up entertaining Michael until wee hours of the night and didn't get a chance to update. For some reason, he woke up at 5:00a.m. yesterday. Then by 5:00p.m. he was wiped out and fell asleep. Unfortunately, he woke up at 9:00p.m. and we were up past midnight.

Marin had a good but uneventfull day yesterday. Her OT came in the morning and Marin got dizzy. We didn't go swimming or anything because she felt like she couldn't do it. Every once in a while we have days like this and we just ride through them hoping for better days. Today she is still sleeping so I'll see how she is when she gets up. The rain revisited us yesterday and it's still yucky out side. Everyone tells us to just go ahead and do things in the rain but I don't want to. It's not any fun going out in the rain, getting wet, looking at dreary skys. The sun is my motivator, it makes me smile. I fear that I'm living in the wrong place. Marin feels like I do too. Cami and Matt and trying to convince us otherwise.

I will update again tonight. Have a great day.

Fondly,

Marin and her gang


Sunday, June 11, 2006 10:20 PM CDT

It's great to hear from so many of you that we haven't heard from in a long time, or not at all. Every new entry, every prayer, and every thought carries her through to the next day. First and foremost by the grace of God. I guess my prayers have been working for today we got SUN!! Marin and I sat in the yard and played cards. We were both wearing our bikini's, shamefully so. We sat there comparing our out-of-shape bodies, our dreadfully white skin, and our harry legs! (too much information!) Anyway, we had fun, laughed a lot, and came out about even on wins and losses.

After the sun, Marin went down to her friend Naiomi's house. Her dad has a recording room in their basement and they goofed around with that for a while, played air hockey, and just hung out. Their family has been such a blessing to us. They frequently speak about moving and for our sake, we hope that doesn't happen.

Every time we get a little break, we work a little more on moving in. Not having a basement to hide all the junk is hard. We have it all in the garage and boy, what a mess the garage is.

I took the girls to the mall yesterday and we had lunch at PF Changs. They have a large vegatarian menu with lots of options for Marin. We sat next to a couple who were "meditation coaches" and they gave Marin some great pointers for helping heal herself. She's driven, determined, and not giving up. She has everything it takes to rise above. I am so proud of her!

Thank you for all the continuous prayers for us and our loved ones.

Sun struck,
Marin

Nancy, Matt, Cami, and Michael


Saturday, June 10, 2006 0:54 AM CDT

Well, we just got back from the movies with Marin's friend Naiomi and her mom, my friend Elizabeth. We saw "The Break Up." Being girls who love romantic comedy, this movie fell short of leaving you with a good feeling. It was good at the beginning and then fizzled out. We still enjoyed our time a lot! When we were leaving, the loby was quite crowded with young people. Marin wanted me to carry her cane. I must admit I had a weak moment and when I went to get the car, I had a little boo-hoo session. She was admired by her peers before, now she wants to hide. Life just isn't fair. Speaking of that, Matt's dad, "Grumpy," had a mild stroke today and is in the hospital. We ask that you lift him up in prayer along with Marin for his recovery.

On a more positive note, we got to go swimming again today! Four days this week, yea! I am starting to enjoy the pool as much as Marin now I think. Michael and I always play in the water together while Marin is swimming. There is something so peaceful about being in the water. When you go completely under, you can hear nothing but the calmness around you. It truly is a special place as I know all you swimmers out there know what I'm talking about.

Marin continues to be going strong after this last round of chemo. I took her to get her blood drawn twice this week and haven't heard the result whether her white blood cell counts have dropped or not. I am assuming that no news is good news. My mom always told me that when we were teenagers.

The weather here in Seattle has been cold again for the last few days. I am hoping for warm weather tomorrow. It is really pretty here, but I just want warm weather!!

Marin hopes everyone had a good day today and thanks all of you for being her friend. Even though she physically if different now, when I look at her, I still see that strong, brave, ever smiling person looking back at me.

Swimstrong!

MARIN
Nancy, Matt, Camlyn, and Michael


Thursday, June 8, 2006 10:37 PM CDT

Today we didn't make it to swimming due to all the scheduling. Marin gets acupuncture every Thursday At the children's hospital downtown Seattle. One of the doctors there gives it to her. We really feel that it is beneficial to Marin. We are going to try to find someone closer to us so we don't have to use up so much of the day for this. When we got home, the OT from school and Ashley came. The OT from school has set up a program for Marin and is reteaching Marin the keyboard and how to type with only one hand. She also is going to cook with Marin a little which Marin is very excited about.

We found out today even though Marin hasn't been attending school and doing 10th grade work, she will be moving up to 11th grade next year and graduate with her class. She will qualify to still recieve services until she's 21 and as we all know, she will be fully recovered by then.

Marin and Mike are playing together now. Michael has been so wonderful with Marin. He's not afraid of her, doesn't look at her strangely, and treats her exactly like he did before. He does announce to people when we meet them that "my sister got broken because she has brain cancer!" He always lighting up the conversation and is such a joy for Marin.

Hope all had a good day.

Marin just told me to write "thank you everyone for making me smile."

Until tomorrow,

Marin
Nancy, Matt, Camlyn, and Michael


Thursday, June 8, 2006 1:41 AM CDT

Hi! It's late here in the Northwest. I fell asleep reading Michael "The Little Red Hen." Marin had another great day. She is on a roll, yea!

Marin swam today for the third day in a row as well. It's fun to watch her in the water, even if one arm doesn't come up anymore. After swimming Marin was really tired today. She had scheduled a therapy and Ashley which both had to cancel so she got to come home and snooze for several hours. She did get up for dinner and had a voice lesson after dinner. Camlyn and Marin do this together and it's great seeing them enjoy something together and interacting.

Yesterday the suggestion of having people make a scrapbook page for her sounded great. The only problem is there's only about a week until her birthday and I think at this point it's too late to get the word out, have people make a page, and send it. I should have started planning something sooner. I have also been thinking about trying to get her a "swim spa." This is an oversized hot tub that creates a current so she could swim against the current. Then when we can't make it to the BAC, she would have the option of swimming right in our yard. Anyway, probably way too late for that too (and too expensive!).
I sound like I'm just rambling. Perhaps I need to go back to bed! I couldn't sleep through the night though without my need to tell about our day and interact with all of you. It's amazing how up dating this journal has become such a part of our lives. I don't feel complete unless we update it, as I'm sure many of you feel that way about reading it.

Hope a pleasant day was had by each and everyone of you..

God bless, Marin
Nancy, Matt, Camlyn, and spidey


Wednesday, June 7, 2006 0:35 AM CDT

Another beautiful day in Seattle. Marin had another engaging day. She started out with her PT, which we're also having issues. Not because of the work, but the plastic brace she wears on her right leg. The one that was made in the hospital in Atlanta shortly after surgery has been hurting her. We went and had another one made and she received it yesterday. She said the new one "kills" her! She would like to walk farther distances but she gets limited because her foot starts hurting in the brace. Hopefully they will be able to come up with something that will be comfortable.

After PT, Marin went swimming again. Two days in a row!! She said she felt pretty good in the water today. Coach Karen is wonderful for her. Marin feels so blessed that she is letting her swim with her masters group. Ashley comes a little earlier on Tuesday so she was hear shorty after getting home from swimming. They worked out in the backyard to enjoy the sunshine. Marin then took a nap.

One of Marin's new friends, Naiomi, lives down the street and plays the harp. She invited Marin to see her last concert until next fall. Marin was feeling well enough to attend so we went. It was incredible. I have never seen so many talanted musicians play together let alone young men and women between the ages of 12-18! It was a nice treat for us both.

Thanks for all the suggestions regarding getting Marin interested in home activities. Also, the cards and gifts she receives put such a smile on her face. Thanks for lighting up her day with entries in this site, etc. She received a cute little cross today that says "miracle." Remember, thats still what we're shooting for. I believe the miracle is in the process.

Hope something exciting happens to each and everyone of you tomorrow!

Hanging in there,

Marin, Nancy, Matt, Camlyn, and Michael


Monday, June 5, 2006 9:48 PM CDT

They're right. Seattle is getting beautiful. Today was a busy day for Marin starting with ocupational therapy this morning. I kind of had a melt down with the therapist. I told her about our weekend and Marin doesn't know what to do. I guess sometimes I want someone else to hold the burden. Anyway, after a less than pleasant conversation, we decided that she would find some more creative ways to work with Marin and be a little more exciting. I also sent out a e-mail locally to see if anyone could volunteer to come once a week to either cook, paint, draw, or scrapbook photos. I think this time would be highly enjoyable for Marin. Any of those interested that are local, call us!!

Thanks a ton for all the great suggestions on getting her involved. Life is always changing and sometimes we stumble onto things that we enjoy so much we don't see how we lived without them. I am hoping that Marin finds something like this to do at home to get her excited.

Anyway, back to Marin's day. After her morning therapy, we headed to the BAC to swim with the masters. She enjoys this probably more than anything. Ashley (teacher) finished off the day with her bubbly self and encouraging personality.

Marin will be turning 16 on June 19th. I am try to think of something really fun for her. I am so happy she is having her birthday and I know in my heart that she will continue to have many, many of them in the future! She is a miracle in the making thanks to all the people lifting her up in prayer.

It's daylight so much longer here in the spring and summer it's hard to get use to. The night turns into day at about 4:30 a.m. and it doesn't get dark till after 9:00 p.m. People say in the summer, it stays light till almost 11:00 p.m.!!

Happy day and night to all of you in all parts of the world our dear friends and family.

A big hug,

Marin, nancy

Matt, Cami, and Michael.


Monday, June 5, 2006 0:21 AM CDT

good evening friends and family,

Today was another lounge around day. Actually, Marin is kind of getting sick of it. The problem is, with her new body and mind, we don't know exactly what she should do. We ask for prayer in helping her find a new direction to focus on. We still focus on swimming, which she is starting to set goals to accomplish things in the next few months, but she also needs to find something to do while she isn't swimming. Reading is difficult, computer work is difficult, talking is difficult. She works on all these things daily, but they're "Work." Marin loves to draw and paint so perhaps I should get her into some classes that will help her with that. She also loves looking at and organizing photos but I usually have to help with the scrapbooking part and with Spidey around, it becomes difficult.

The weather continues to improve here and the beauty of Seattle is shinning through. We continue to meet the most wonderful people daily and feel so blessed for them. Our dear friends and neighbors, Kari and Tor, are moving away in a few weeks. Kari has played such a big part in getting the neighborhood involved with helping us, finding friends, and spreading sunshine!! We feel blessed that we got to get to know them before they moved.

We miss summer swim team more than you could possibly imagine. We really had something special in georgia with all the neighborhoods with pools and swimteams. Hope eveyone is doing great, swimming well, and starting their summer off with a bang. We feel you love and support daily and pray for each and everyone of you as well.

Big hugs to all,

marin, Nancy, Matt, Cami, and Michael


Sunday, June 4, 2006 1:22 AM CDT


Weekends were made for at least a little relaxation and Marin certainly deserved to enjoy some of that. Friday evening she went met her friend Molly at the movies and was intorduced to some new friends as well. The girls saw the new movie about a spelling bee and really enjoyed it. They had an emotional moment watching one of the previews of an upcoming film about a young star athlete who's injured in an accident and can no longer participate in sports and it hit too close to home for Marin. Not that she fell apart or anything, but she was touched by the irony. Nevertheless she still continues to smile under most any circumstance, and getting out to see some friends was great for her.

Saturday was made for sleeping-in, and with no therapy sessions on the schedule Marin had a chance to simply chill out most of the day. Together with Nancy, they worked on fixing up Marin's room a little bit and once the cleaned it out and set it back up, Marin was seen dancing to some music in her revamped 'personal space'. It's so nice to see her enjoying things as she can and always keeping a positive attitude. The entries in the guestbook always bring her cheer and we thank you for that.

Enjoy a great Sunday,

Marin, Nancy, Matt, Camie & Spidey


Friday, June 2, 2006 2:09 AM CDT


Rolling in to the weekend on pins and... waves. Marin returned to her accupuncture therapy Thursday, then hit the pool for a brief but stimulating workout. Whenever she gets the chance to swim, it energizes her in a noticable way. In addition to all that activity, she had good sessions with speech, physical therapy and Ashley her teacher today. A full day and she looked and felt great, although I'm sure she's looking forward to a little TGIF.

Friday she's looking forward to some social time with Molly & maybe some other friends as they're planning on taking in a movie. We're still waiting on the weather to turn with the calendar, so hopefully soon we'll be getting more consistent sunshine. Heck, it's only June!

Enjoy,

Marin, Nancy, Matt, Camie & Spidey


Thursday, June 1, 2006 0:12 AM CDT


Sometimes simply getting through the day can be exhausting and in times like this the support of good friends is immeasurable. Sensing we could use a little help, our merry band of wonderful neighbors arrived this morning for a mass organization session, helping get things in order around the house and taking some pressure off by helping with a back-log of paperwork, etc. In addition, the Sammamish Moms Club made a big monetary donation after raising funds through a garage sale. I tell you, the spirit of people continues to amaze us and really strengthens our faith. The families in our neighborhood have been wonderful pitching in when we've needed it most and our gratitude is immeasurable.

From our good friends in Georgia, another sizable donation arrived from the Dynamo Swim Club. They held a splash meet and raised money for Marin, sending a check with lots of hugs and prayers. Marin didn't even swim for the Dynamo club, but so many families we've become acquainted with through the years have been wonderfully supportive through all of this.

Also today, Marin received a call from her coach Chris Davis at SwimAtlanta just to say hi and see how she's doing, which we're glad to say is pretty good. While she was deep asleep when he called, just hearing from Chris always really brightens Marin's day with a big smile. She was rather busy most of the day with two sessions of physical rehab, speech therapy and schoolwork. She continues to show slow but steady improvement in her work, particularly her reading. As always the determination overrides her limitations and it's inspiring to see her work. She's feeling well and it shows.

Have a great Thursday,

Marin, Nancy, Matt, Camie & Mike


Tuesday, May 30, 2006 2:04 AM CDT

greatings from the great northwest!!

I am still trying to figure out why they call it the "great" northwest. Actually, the people here deserve that title but the weather certainly does not. People keep reassuring us that this is the worst weather they have had in years. Regardless, it rains, and it rains, and it rains. We still managed to get out quite a bit this holiday weekend though! We were invited down to a neighbors house on Sunday for a little party. It was just down the street and we met some more wonderful people and michael made two new friends, both of who are 4 year old little boys! Yea!! Marin layed low and only came out for a little because it was quite chilly outside and she doesn't want to get chilled.
Today, Monday, we went to Tom G. house for another get together. Tom is the wonderul guy that let Matt live with him for all those months until the rest of us moved here. He and his new bride, Erica, made a great meal with homemade ice cream and all! Unfortunatelly, Marin didn't get to try any but she certainly enjoyed chips and salsa.

Tomorrow we hope to get Marin back in the pool. I know she really misses it and needs some good swim days. Her spirits remain high and her smile stays strong. I still frequently have melt downs when I look at my dear little Marin and think of all that she has been through, and continues to go through. I am thankful that I can hug her daily, tell her how much I love her daily, and hold on to a lot of hope daily. Your words of encouragement, kind and thoughtful gifts, cards, prayers are what keep both her and I, as well as the rest of the gang going. We appreciate each and everyone of you for hanging in there with us.

Pleasant dreams to each and everyone of you.

Hugs, Marin and mom Nancy

Also, Matt, Cami, and Michael


Saturday, May 27, 2006 4:32 PM CDT


Marin finished off her five days of chemotherapy Friday and came through like a champ. The dosage was taken down from her last treatment, which left her feeling sick by the end of the week and her white blood cell count was very low for several weeks. This time, she hasn't felt any of the illness so far and she's been in good condition all week. Now we wait another month before her next MRI and proceed from there. By now, Marin is acclimated to her macrobiotic diet and her regimen of supplements that we believe are all having a positive affect.

To celebrate the end of the week, we all went out to the movies and saw "Poseidon". We all really liked it, including Mikey, who had to draw on all his spiderman powers to get through some of the scary parts, but he was tough (and we covered his eyes from time to time). The girls liked it so much we had to go out and rent the original version of "The Poseidon Adventure" for comparison. Over the long holiday weekend we'll be relaxing at home and spending time with friends and neighbors. We hope everyone out there is able to enjoy the holiday.

Still waiting for the sun,

Marin, Nancy, Matt, Camie & Michael


Friday, May 26, 2006 2:28 AM CDT


Through four days of chemtherapy this week, it's so far, so good for Marin. She's been a champ each and every day, and she hasn't had any of the illness that crept in the last time around. She's squeezing in an hour of speech therapy before going to the hospital each morning and she's really showing slow but steady improvement in her cognitive functioning. All of her therapists have commented recently on various improvements, and although the progress is slow, it is definitely there. Marin still measures herself by her own standard of athletic excellence so it's hard for to get excited about some of this, and at the same time it's her refusal to accept only limited advancement that's driving her overall improvement.

Thursday evening we enjoyed a terrific dinner from our guardian angel Caroline who brought over a huge pot of veggie chili and a great salad and we all chowed down. It's such a blessing to have help like this and so many of our good neighbors have been pitching in to ease our burden. After downing chili, Marin chilled out, hit the bed early and is looking forward to finishing up treatment Friday.

Looking ahead with a great attitude,

Marin, Nancy, Matt, Camie & Spidey


Wednesday, May 24, 2006 2:39 AM CDT


Marin continues to amaze and inspire us with her great attitude. The routine this week is up early, on to the hospital where she's poked and prodded for a while before taking on chemotherapy for a couple hours, then home to therapy & school. She handles all this daily without complaint, even when you can read the pain and exhaustion on her face. Her arm is raw from all the IV's she's had to endure over the last two weeks, and getting stuck with a needle is aweful for her, but she endures it every day with grace and courage. We truly believe her attitiude is having a great affect. The combination of medical treatment, nutrition, mental attitude, spiritual faith, prayer support and the love of family and friends has been the key to Marin's recovery and the source of our ever increasing hope for her future. We are at once proud and humbled to share this experience with everyone who joins us in keeping Marin close in our hearts.

Thanks everyone,

Marin, Nancy, Matt, Camie & Mike


Monday, May 22, 2006 11:08 PM CDT


When Marin bounces back, she sure does it in a big way! We went in for her blood work this morning, and after two difficult weeks of slowly rising white blood cell counts, Marin's number today was up ina big way, allowing her to begin her much anticipated course of chemotherapy. This was a big relief for us, but a bittersweet turn for Marin who now has to spend several hours each day the rest of the week in the chemo unit. She took her first dose today and was feeling kind of woozy later in the day. Because the last treatment left her so low on the white cell counts, they've dialed back the dosage to avoid a similar occurence. We'll see how she reacts to this one. She did get sick toward the end of the last course, but before that she handled this level of medication without much reaction at all. As always, Marin handled this entire episode with a great attitude... we're very proud of her.

We'll be spending the first half of each day in Children's hospital this week, and Marin will be handling as much rehab and school as she feels up to beyond that. In the meantime, we're moving forward with spring weather getting nicer all the time. Thanks for all your continued prayers and concern.

Enjoying the opportunity to get better,

Marin, Nancy, Matt, Camlyn & Spidey


Monday, May 22, 2006 3:04 AM CDT


Our concerns over Marin's late chemo treatment is tempered by our observation that she is really enjoying herself right now. For a fifteen year old with every reason to complain, it really inspires us that Marin gets up everyday, goes about her business with a purpose, and makes every effort to improve and enjoy herself as much as she can. Marin labors through the efforts that must us take for granted, but she enjoys this I think because it's affirmation that she's alive and has a place in this world. She smiles more and more and I think it's clear that her positive attitude is having a positive affect on her recovery.

We had some good family time this weekend that included some time on the patio enjoying the sun and taking in a movie Saturday. Camie & Marin saw "The Da Vinci Code" and enjoyed it. Nancy & Mike saw "Over the Hedge" and really loved it, especially Nancy! We hope you all had a wonderful weekend, too.

Rise & shine one day at a time,

Marin, Nancy, Matt, Camlyn & Spidey


Saturday, May 20, 2006 1:53 AM CDT


Unfortunately, the beat goes on. Marin's white cell count yet again was not up enough for her to begin chemo today so we'll wait the weekend and try again Monday. Her numbers are very close to where they need to be, although today it was actually a couple points less than what it was two days ago. We are somewhat concerned about going so long between treatments, but her oncologist is reassuring that the setback shouldn't be a problem. Marin is feeling well and doing great in all of her rehab, so we'll remain positive.

This evening we all went together to see the Mariners play the Padres at Safeco field. Decked out in her sweatshirt and cap the team gave her over Christmas, Marin was on her feet several times during the exciting game and she really enjoyed the action, including a cool play at the plate where Ichiro threw out a runner trying to score while the catcher Kenji Johjima made a great play to tag the dude out as he was getting crushed by the runner. In the end, Seattle beat San Diego & we all went home with the world's tallest bobbleheads (Richie Sexson).

Have a great weekend,

Marin, Nancy, Matt, Camie & Mikey


Friday, May 19, 2006 12:08 AM CDT


A few reasons to laugh when you're around Marin these days: her hair is growing in curly in several spots - we looked at each other in the mirror and laughed uncontrollably about this the other night. For the visual, just imagine half of her heard with long, shoulder length, thick straight hair... the other half, or parts of it, short and thick wavy curls. It's quite a sight. Marin still manages to style it with hats or headbands so it always looks good, but it sure is funny when you think about it. Another point of ammusement is her aphasia issue which affects how she recalls some words, so that almost all the time, mom is "Dad" & dad is "Mom". It's just kind of funny how now we both answer to the opposite, knowing exactly what Marin means.

Thursday she had a good session in the pool and was feeling well. We celebrated the birthday of her teacher Ashley and enjoyed another evening of terrific weather with dinner on the porch. Today, we're on our way to the hospital for blood work and possibly chemotherapy. We'll let you know how it goes. This evening, the whole family is going to Safeco Field to watch the Mariners play the Padres.

Have a great Friday,

Marin, Nancy, Matt, Camie & Mike


Thursday, May 18, 2006 1:18 AM CDT


It's always so wonderful to hear from friends far and near and please know that we feel your love and support every day no matter how often or not you're able to leave a note on Marin's web page. She could use a little extra support this week as she's been having some recurring headaches. Marin isn't one to complain so she's been toughing it out, but we know she's not feeling that well and we're praying to ease her pain.

Once again we're frustrated with her chemo schedule as her white cell count still hasn't reached the threshold that she's allowed. The good news is that the number continues to climb and she's getting very close. We expect it to be there by Friday with hopes we can begin her next course then. Thanks for your prayers on this one.

Even with the disappointment of getting poked and developing a headache, Marin is managing to make the most of the nice weather here. Soaking up the sun is good for her, we're told, so that's been her homework. Marin continues to take her rehab sessions between doctors visits and her lessons with Ashley, so even as we try to navigate the difficult situation right now, Marin's keeping a fairly normal schedule. She loves hearing from everyone on the website, so thanks for all your input.

Even through setbacks, moving forward,

Marin, Nancy, Matt, Camlyn & Spidey


Wednesday, May 17, 2006 0:40 AM CDT


For the sake of her medical advancement, Marin had to spend most of the day hanging out in the beautiful sunshine as we enjoyed another spectacular day here in the northwest. Her doctor said that sunning herself would be good for her white blood cell count and I suppose we'll find out Wednesday if it helps. Marin is going in for an early morning blood test, and if her white cell count is elevated enough, she'll proceed with her next course of chemotherapy.

Today Marin enjoyed a visit from our neighbor and friend Noami who was happy to spend part of her day helping Marin get better soaking up the sun. Her social life is a source of difficulty for her as she needs the closeness of friends but doesn't have the communication ability to get there. Still, some good people have been trying very hard and we're very appreciative of their friendship.

Take the time to let your friends know how much they mean to you and have a great Wednesday,

Marin, Nancy, Matt, Camie & Micheal


Tuesday, May 16, 2006 2:25 AM CDT


Alas, it's more of the same for Marin & her next chemo treatment. Her white blood cell count is up from before the weekend, but still not at the level allowable under the guidelines of the clinical study. But we're encouraged that she's getting there and she continues to feel good so hopefully by midweek we can get the next course going (we're anxious because it's now getting quite a bit overdue). We'll keep you posted. In the meantime, our friend Shelly passed along an e-mail gem that I thought the readers here would appreciate.

Have a wonderful week & enjoy,
Marin, Nancy, Matt, Camie & Mike (Grams split Monday)

Did God create evil?
University professor at a well known institution of higher learning challenged his students with this question. "Did God create everything that exists?"
A student bravely replied, "Yes he did!"
"God created everything?" The professor asked.
"Yes sir, he certainly did," the student replied.
The professor answered, "If God created everything; then God created evil. And, since evil exists, and according to the principal that our works define who we are, then we can assume God is evil."
The student became quiet and did not respond to the professor's hypothetical definition.. The professor, quite pleased with himself, boasted to the students that he had proven once more that the Christian faith was a myth.
Another student raised his hand and said, "May I ask you a question, professor?"
"Of course", replied the professor.
The student stood up and asked, "Professor, does cold exist?"
"What kind of question is this? Of course it exists. Have you never been cold?"
The other students snickered at the young man's question. The young man replied, "In fact sir, cold does not exist. According to the laws of physics, what we consider cold is in reality the absence of heat.
Everybody or object is susceptible to study when it has or transmits energy, and heat is what makes a body or matter have or transmit energy. Absolute zero (-460 F) is the total absence of heat; and all matter becomes inert and incapable of reaction at that temperature. Cold does not exist. We have created this word to describe how we feel if we have no heat."
The student continued, "Professor, does darkness exist?"
The professor responded, "Of course it does."
The student replied, "Once again you are wrong sir, darkness does not exist either. Darkness is in reality the absence of light. Light we can study, but not darkness. In fact, we can use Newton's prism to break white light into many colors and study the various wavelengths of each color. You cannot measure darkness. A simple ray of light can break into a world of darkness and illuminate it. How can you know how dark a certain space is? You measure the amount of light present. Isn't this correct? Darkness is a term used by man to describe what happens when there is no light present."
Finally the young man asked the professor, "Sir, does evil exist?"
Now uncertain, the professor responded, "Of course, as I have already said. We see it everyday. It is in the daily examples of man's inhumanity to man. It is in the multitude of crime and violence everywhere in the world. These manifestations are nothing else but evil.
To this the student replied, "Evil does not exist, sir, or at least it does not exist unto itself. Evil is simply the absence of God. It is just like darkness and cold, a word that man has created to describe the absence of God. God did not create evil. Evil is the result of what happens when man does not have God's love present in his heart. It's like the cold that comes when there is no heat, or the darkness that comes when there is no light."
The professor sat down.
The young man's name -- Albert Einstein
A true story.


Monday, May 15, 2006 1:07 AM CDT


It was an absolutely spectacular Mother's Day here in the northwest with a bright blue sky that arrived before sun up and lasted beyond dusk. Marin had the privelege of spending this special occasion with both her mother and grandmother, certainly a holiday to remember. Whe we returned from church, we were pleasantly surprised with a beautiful bouquet of fresh flowers along with a big box of baked goods, made from organic ingredients for Marin's sake, and left by her friend Molly and her mother. What a wonderfully thoughtful gesture by two lovely people; we're only sorry we weren't home to visit when they stopped by.

For her special day, Nancy wanted to plant a garden in our back yard, but because we haven't really figured out our back yard yet, she suggested a box garden, so we went to home depot and picked up the lumber, supplies and some garden veggies and flowers and built Mom a box garden for the back yard. We'll be eating our own cherry tomatoes & red peppers in no time. Maybe corn, lettuce, who knows... flowers for sure.

Marin has a big week ahead with no less than three appointments tomorrow. She's due to have her AFO (ankle & foot orthodotic) brace replaced so that's the first thing in the morning. Hopefully a new brace will allow her to walk longer with less discomfort. Then she'll go downtown to Children's hospital for more bloodwork to see if her white cell count has risen to an acceptable level in order to begin her next round of chemo. We're hoping she can begin that tomorrow as well. As always, thank you for the well wishes, kind notes, and prayers... there's no doubt they're working!

Looking forward to a good week ahead,

Marin, nancy, Matt, Camlyn, Michael & Grams


Monday, May 15, 2006 0:37 AM CDT


It was an absolutely spectacular Mother's Day here in the northwest with a bright blue sky that arrived before sun up and lasted beyond dusk. Marin had the privelege of spending this special occasion with both her mother and grandmother, certainly a holiday to remember. Whe we returned from church, we were pleasantly surprised with a package of baked goods, made from organic ingredients for Marin's sake, and left by her friend Molly and her mother. What a I thoughtful gesture by two lovely people; we're only sorry we weren't home to visit when they stopped by.

For her special day, Nancy wanted to plant a garden in our back yard, but because we haven't really figured out our back yard yet, she suggested a box garden, so we went to home depot and picked up the lumber, supplies and some garden veggies and flowers and built Mom a box garden for the back yard. We'll be eating our own cherry tomatoes & red peppers in no time. Maybe corn, lettuce, who knows... flowers for sure.

Marin has a big week ahead with no less than three appointments tomorrow. She's due to have her AFO (ankle & foot orthodotic) brace replaced so that's the first thing in the morning. Hopefully a new brace will allow her to walk longer with less discomfort. Then she'll go downtown to Children's hospital for more bloodwork to see if her white cell count has risen to an acceptable level in order to begin her next round of chemo. We're hoping she can begin that tomorrow as well. As always, thank you for the well wishes, kind notes, and prayers... there's no doubt they're working!

Looking forward to a good week ahead,

Marin, nancy, Matt, Camlyn, Michael & Grams


Sunday, May 14, 2006 0:06 AM CDT


Well what are weekends for anyway? For the first time in recent memory, Marin didn't have anything on her schedule so she had a whole day to simply relax. She needed it too, as she was worn out from an extensive week of appointments and such.

Apiece of mail she received today really touched Marin as her cousin Charlie Schinske in Michigan swam 1000 yards in a postal meet and took pledges to raise money for Marin's medical care. Anyone that's ever been attempted to swim 1000 yards, or even half that, or if you've ever even seen somebody do it, you know how hard that is. And Charlie did it and raised some $eriou$ bucks for Marin. What a wonderful gesture! Thanks Charlie, and thank you to all the benefactors that made pledges for his most valiant effort.

Among the many, and maybe most of the people who read Marin's journal regularly are mothers who empathise closely with Nancy, and many of whom are caring for sick children of your own. We want to wish you all a wonderful Mother's Day to enjoy with family.

Happy Mother's Day everyone,

Marin, Nancy, Matt, Camlyn, Spidey & Gram


Saturday, May 13, 2006 1:16 AM CDT


Among the momentos Marin brought home when she returned from France was a small photo album that our cousin Dan Morrison (East Coast Dan... as opposed to brother West Coast Best Coast Dan Morrison) put together for her and passed to her through our family friends Herb & Diane who were also on the pilgrimage to Lourdes. The album turned out to be a wonderful tribute to Marin and her spirit as Dan carried a sign that said 'Marin' to several cool places around the globe and took photos of himself with 'Marin' in a number of great settings and poses; under the expanse of the Eiffel Tower in Paris; drinking in a pub in London; on the mall in Washington DC, chillin' on his sofa at home, and many more. Creative and humorous, the album shows Dan always has Marin in his heart wherever he goes, a great idea and a wonderful gift.

Friday we took Marin to Virginia Mason hospital for a consultation with a doctor at the center for hyperbaric medicine. While there are some very good reasons to pursue this therapy, there could be some concerns regarding how it may affect cancer cells, so we're looking in to this further and won't be starting any course of treatment until we're more clear on the overall affects.

Friday we all went to see Camie perform in her school play and really enjoyed it. "Honk Jr." is a musical based on 'The Ugly Duckling' by Hans Christian Anderson. It was very well done, very entertaining, and Cammie performed her part wonderfully. Way to go Peach! Then we topped off the week with ice cream & cake to celebrate Gram's birthday!!

Have a great weekend everyone!

Marin, Nancy, Matt and
Meryl Streep, Spiderman, & Birthday Girl


Friday, May 12, 2006 0:38 AM CDT


Back online, and with apologies for keeping everyone in suspense for the last few days, we had technical difficulties with our service provider and we only solved the problem late Thursday. The impact was felt loud and clear as friends called to ask if Marin was okay, as well as those of you who wrote in the guestbook to inquire. We're always aware of how these entries in the journal affect us; it's an important and cathartic daily use of our energy as we travel through this experience, but it's always a bit surprising and humbling to realize how many readers are tuned in and truly care about how Marin is doing and how our family is dealing with the day-to-day issues of her illness.

So to get caught up, Marin is still low on her white blood cell count, so we've been unable to get her started on the next course of chemotherapy. This may be an indication that the last dose was just too strong and we're discussing taking it down a notch when we're able to continue. We're restricted somewhat by the perameters of the clinical trial, so the options are not all our own. The better news is that Marin is continuing to feel well. We're concerned about exposing her to any germs or illness so hand washing is the first order of business for any visitors. The white cell count taken Wednesday was actually a little bit lower than the sample taken Monday, so we're gonna keep pumping her with the good fruits, veggies and protein then try again next Monday.

In the meantime, Marin's still moving forward. Therapy continues and she's been swimming twice this week so far. Watching her in the pool today was really amazing because she's really gotten in to the rythm of her workouts and seeing her glide through the water, she makes you forget that she's performing these graceful strokes with the use of only one arm and one leg. She's amazing.

Friday we're going in to Virginia Mason hospital for her first hyperbaric oxygen session. We'll be taking Marin in for this five times a week for 40 visits with a lot of hope that it will have a positive affect on her neuro-function and hopefully help her regain better use of her affected limbs. We've heard some very good testimonies of what the oxygen therapy can do in the wake of radiation damage and we're happy that Marin is getting the opportunity to see if this can help her. Also on Friday, we're escited about Camie's school play as we celebrate Gram's birthday!

Looking forward to a fun weekend & a happy mother's day,

Marin, Nancy, Matt, Camie, Mike & Gram (birthday girl)


Monday, May 8, 2006 10:27 PM CDT


Well, we're still a bit stuck in the mud and unable to move forward with Marin's next course of chemo. While her white cell count did climb over the weekend, the number still didn't reach the minimum level necessary to start the next treatment. Marin will get tested again in two days and hopefully we can move forward from there. So instead of speanding half the day in the hospital, we detoured to the Bellevue club for a good swim workout, her first in more than a week, and she really felt great. Marin lit up when she saw coach Karen and the swim session was great for her.

Among the cards and letters Marin receives at home, we opened a package today from The Cyclones Swim team from Pembroke Pines, Florida and my, what a heartwarming gift they sent. Along with a team t-shirt that bears the wonderful slogan "Swim Marin Strong" from the Wave of Courage Foundation, the swimmers on the team made eight cards for Marin with small group pictures on each and signed with thoughtful notes from each of the team members. They wrote about how they swam in Marin's honor at a recent meet, and sent her a picture of the poster they made for the occasion. The thoughtfullness and effort of the Cyclones, with all the friendly smiling faces in the photos on the cards really touched us all. Thank you for wonderful gesture... and I know there are many teams out there who've been doing the same, with Marin as inspiration, and it's important for all of you who are 'Swimming Marin Strong' to know that it's actually working!! Marin is improving and we believe it's because of many things, especially the support and prayers of so many friends who believe in her.

Not everything goes the way we hope, like today, but good people always seem to step up to make the most out of difficult situations. It certainly strengthens our faith.
Thanks Cyclones, it was a big lift.

Looking forward to tomorrow,

Marin, Nancy, Matt, Cammie, & Spidey.


Monday, May 8, 2006 0:30 AM CDT


It's strange to be saying that we hope Marin is ready for another round of chemotherapy, but that's our situation going in to this week. Because of her trip to Lourdes, she's already several days behind her schedule and then we learned she couldn't start the treatment late last week due to a deficiency in her immune-supporting white blood cell count. So we've been boosting her diet with tons of good eats, like broccoli and berries which she's been eating lots of anyway, just not while she was on her trip. We'll go in early Monday for a blood test and if all looks good we'll start the next phase of her clinical trial right away and go straight through the week.

In the meantime, it's been an enjoyable weekend. The family went to the movies Saturday with Marin, Cami and Grams checking out "Mission Impossible III" while Mom and Spidey took in the more appropriat for a 4-year old "The Wild". The crew that saw the Tom Cruise flick returned mixed reviews: Marin really liked it (as she does when Tom Cruise is on screen), Camie thought it was good too, but Grams thought the violence was over the top (what'd you expect, Grams?). Okay, that all figures. Mikey & Mom both liked "The Wild" so everyone was entertained.

We mentioned yesterday that Marin has been demonstrating a little movement in her right ankle, and she's continuing to work that. It's amazing how such a simple act can make such a big impact, something we all take for granted, but for Marin seeing just the slightest improvement in her paralysis really inspires her. And all of us as well.

Here's to a great week ahead,

Marin, Nancy, Matt, Camie, Mike & Grams


Saturday, May 6, 2006 1:36 AM CDT


How's this for a TGIF on Cinco de Mayo; lots of broccoli and algebra! AArrribbaa! Marin has been knoshing on broccoli and berries all day as her mission this weekend is to get her infection-fighting white blood cell count up before Monday's examination. She needs her next course of chemo but her white cell count was too low on Friday. Nancy has been feeding her all the good stuff, including blueberry smoothies and lots of broccoli to get her system recovered from a week of thin dieting in France.

Back on schedule with her therapy, Marin had a bit of a breakthrough with some movement in her right ankle. It's very labored, but it's something. When her teacher Ashley worked with her today, Marin was excited to be able to do algebra problems. She always has enjoyed math and now when she's able to recover her skills and make some progress, it's very uplifting for her. She's a hard working kid and her attitude is inspirational.

We're keeping our Uncle Everett Livingston and his family in our hearts and prayers this weekend

Enjoy and appreciate every day,

Marin, Matt, Nancy, Camlyn, Spidey & Grams

Marin, Matt, Nancy, Camie, Mike & Gram.


Friday, May 5, 2006 2:42 AM CDT

We're back and recovering! The journey home was good and uneventful. We really experienced something indescribable over in Lourdes, France. The unbelieveable kindness from everyone was wonderful. Marin and I were prayed for, waited on, and I believed blessed by God. Not only was it a wonderful spiritual experience, but it once again showed us how wonderful so many people are in this world. Marin and I made some new, wonderful friends that I'm sure will be a part of our lives for many years to come. We once again have been blessed.

Today was long and tiresome, yet once again, good news knocked on our doors. We arrived at the hospital at noon for Marin to do an MRI. Once again the scan showed no new growth. Yea! The tumor doesn't appear to have shrunk for this month but no growth is great. Marin was not, however, able to start chemo. The blood work done showed her white blood count down too low. They want us to wait until Monday, go back, then try again. Over in France, the communication made it difficult to explain what Marin needed to eat. They lacked vegtables, berry fruits, and nondairy protein. She basically ate lettace and pasta daily which don't have the immune fighting vitamins that she so desparately needs. We stopped at the store and I bought pounds of these things so you know what Marin will be doing for the next three days! I also think they bumped her chemo level up too high the last time. I requested if they could contact the "chemo trial head" to see if they could give her a lower dose this next time.

Marin also did get to go to acupuncture. I believe this to be important because it releases energy on her bad side trying to stimulate activity. Our next project we will be working on is setting us Marin to do hyperbaric Oxygen. I am going to try to get it done here is Seattle if the insurance will cover it. If not, a long trip to Canada is what we will have to do because they offer it, but not at the 1,000.00 per day price tag that it cost here. This treatment puts Marin into an oxygen chamber and increases the oxygen to high levels. It stimulates the blood vessels which could possibly help Marin with her speach or paralysis.

Marin's request for prayer today is for her white blood counts to go way back up to a good level, and that we get the Hyperbaric Oxygen to be approved here in Seattle. As always, we pray for complete recovery for our dear little Marin.

It's great to be back journaling with each and everyone of you who reads this. The daily entries will resume. Thanks again for keeping us moving forward with undying support and prayers. I believe Marin's miracle is in the works.

Pleasant day or dreams, whereever or whenever you may be right now.

Big hugs and kisses to all Marin's supporters,

Love, Marin and Mom
Matt, Cami, and Michael (with a new haircut too)


Wednesday, May 3, 2006 2:03 PM CDT


We're saddened this week with the passing of our uncle Everett Livingston. Uncle Ev was one of the all-time greats! Please kindly remember aunt Faith and the entire family (8 children, numerous grand children) in your prayers.

Marin and Nancy are winging their way home from France after what we understand was a wonderful week at Lourdes. Do you believe in miracles?! Our contact has been limited because of the time difference and the limited availability for Nancy to use a phone while there. When she has called, it's been great to hear her voice; she sounds so happy and it's clear that the pilgrimage has been great for both of them.

Of course we've been missing them on the homefront and we're anxious to have them home to tell us all about their adventure. Grams & Grumpy have been holding down the fort while I've been taking care of business. It's been a good bonding experience for the kids and grandparents who haven't been together as much as we would have liked over the years. It's one of the reasons we thought a move to the west coast might make sense as we'd have the chance to be closer to our families.

When Marin returns, she's diving right in to another round of her chemo clinical trial. We're anxious to learn what her next MRI shows. She's been doing so well physically and spiritually, but those aren't necessarily good indications of what's going on inside. Marin's also been listening to a special CD made for her by Craig Townsend to help her relax and focus her mental energy on fighting her cancer. Everything positive helps right now and we really appreciate everyone's input and support.

Always believing in miracles and doing what it take to make them happen,

Matt for Nancy & Marin
with Camie, Spidey, Grams & Grumpy


Tuesday, May 2, 2006 7:24 PM CDT


By now Marin and Nancy are getting ready to wing their way home from France after what we understand was a wonderful week at Lourdes. Do you believe in miracles?! Our contact has been limited because of the time difference and the limited availability for Nancy to use a phone while there. When she has called, it's been great to hear her voice; she sounds so happy and it's clear that the pilgrimage has been great for both of them.

Of course we've been missing them on the homefront and we're anxious to have them home to tell us all about their adventure. Grams & Grumpy have been holding down the fort while I've been taking care of business. It's been a good bonding experience for the kids and grandparents who haven't been together as much as we would have liked over the years. It's one of the reasons we thought a move to the west coast might make sense as we'd have the chance to be closer to our families.

When Marin returns, she's diving right in to another round of her chemo clinical trial. We're anxious to learn what her next MRI shows. She's been doing so well physically and spiritually, but those aren't necessarily good indications of what's going on inside. Marin's also been listening to a special CD made for her by Craig Townsend to help her relax and focus her mental energy on fighting her cancer. Everything positive helps right now and we really appreciate everyone's input and support.

Always believing in miracles and doing what it take to make them happen,

Matt for Nancy & Marin
with Camie, Spidey, Grams & Grumpy


Saturday, April 29, 2006 2:16 PM CDT

Bon Jour,

We can't believe how fast the time here has been going. It is quite an experience here. Everyone here is caring for the sick, or is sick. The knights of Malta, whom brought is here, are actual knights that started back in the 1200's. There mission has always been to help the sick. Marin has been blessed so much with this experience. The town Lourdes is a small french town that sits on a river. The hotel we are at is only minutes from the Grotto. Last night we had a candle ceramony where everyone carried a lit candle and walked down the street singing. It's hard not to shed any tears, not only because of the moving experience, but also because you worry about all the others here that are sick and are praying for a miracle for them as well.

Today we woke up and had mass at the Grotto. The sun was shining and birds were flying around. We then went into the grotto and felt the wet rocks that the fresh spring gently trickles down. We then went back to the hotel for lunch and Marin napped. When she awoke, we headed to the loby and broke out our cards. Several kids joined in and Marin was having a great time. We then headed to dinner and now are back in the room.


Marin has been feeling great the whole trip. Yesterday her body got pretty stiff from sitting so much so today we made a point of getting her up to walk around. They have been having a difficult time making her things to fit her diet. Salad and bread has been pretty much it. Both Marin and I have met some incredible people and made many friends. One of the Knights and Dames are taking us to Spain next Tuesday to see the statue of St. Sebastian, the St of Athletes. Exciting stuff!!

We miss everyone tons and hope all are well. We spoke with Grams and Grumpy who are staying with Michael and Cami. They said they took Michael on a boat ride yesterday in Seattle and Michael was pointing out "Turkey" on their right. He explained to them that he had just been to Turkey and there it was! (I sure do miss my little man!)

As always thankful for your continued support and prayers. Marin keeps fighting hard for us all.

Bunches of prayers to all,

Nancy and Marin


Thursday, April 27, 2006 2:56 PM CDT

Hi! We have made it to Lourdes and having a great time. The first day we arrived and had a wonderful dinner followed by a meeting with our "green" team. There are several "milades" here from all over the world. On Thursday, following a wonderful night's sleep, we met with our team in the garage of the hotel and they put all the sick in carts (they look like little carriages). We proceeding down the streets of Lourdes and went to a mass. They distributed Rosaries to all the sick. We then were brought to see all the churches and the holly waters that St. Bernadette washed in. It is quite a spectacular sight and everyone is so nice. We ended the evening with Mass and a wonderful dinner.

The cooks have been very accomodating with Marin's diet. I think again she has won the hearts of several people already. Everyone has also been helpful with me in support and taking care of Marin. We feels very blessed in being here and thank all of you for your continued prayers and support. We believe Marin is experiencing a miracle already.

Happy day. We will write again soon.

Much love,
Marin and Nancy


Wednesday, April 26, 2006 1:08 AM CDT


The girls blasted off this morning, leaving Seattle for San Francisco, then direct to Paris and on to Lourdes. Marin was very excited full of energy as she and Mom were getting set to board the plane. They were well stocked for the long flight with homemade macrobiotic cookies courtesy of our wonderful neighbor Val. She can bake!! Over the next week, Marin will be the guest of the Knights and Dames of Malta and while we've already become acquainted with members of her team, we know that in a week's time she and Nancy will be making some wonderful friends. They're looking forward to meeting Herb & Diane Harmon, two of our Uncle Mike's closest friends who are also making the healing pilgrimage this year.

On the homefront, we had a fun celebration for Camie's 12th birthday today. After her 10-friend sleepover last Friday, today was the official birthday (the chick knows how to stretch out her special day). She and her friend Hannah who shares her same birthday went to lunch at Camie favorite sandwhich shop where Gram, Dad & Mike met them for a sub. Later, Dad made her requested birthday dinner of poppy seed chicken (it was terrific, if I do say so myself... but don't take my word for it, everyone else thought it was great too). Presents were next, followed by another round of birthday cake and then 'American Idol'. All of that squeezed around a book report and Camie's birthday was a day to remember and it was extra special to have Gram & Grumpy here to share in the day.
Later, Gram & I were cleaning up & watching an episode of Seinfeld that, ironically, featured Elaine failing a drug test because she ate a bunch of poppy seed chicken!

Bon Appetite!

Matt, Camie, Spidey, Gram & Grumpy


Monday, April 24, 2006 0:18 AM CDT


A spectacular spring weekend has been a nice setting for a visit from Marin's Gram & Grumpy. She's been very happy since our company arrived Saturday night. Marin's always been especially fond of all her grandparents and laments that we haven't seen more of them over the years. This morning we all went to church together and enjoyed a relaxing afternoon. In the evening, Marin turned Grumpy on to the Harry Potter movie that was playing on cable & the old goat really liked the adventure.

In the meantime, Nancy & Marin are gearing up for their big trip to Lourdes. They leave Tuesday morning and will be gone a week. It's very exciting to know that they'll be among the select few who will experience the grace of the blessed journey with the Knights and Dames of Malta this year.

Looking forward to a wonderful week ahead,

Marin, Nancy, Matt, Birthday Girl & Spidey


Sunday, April 23, 2006 0:17 AM CDT


An absolutely spectacular Saturday here in the northwest meant getting outside for a nice afternoon. Mom took Marin, Camie & Spidey on a day trip to a Tulip festival north of Seattle. It was great to enjoy the sunshine and the tulip fields were beautiful, but everyone else this side of Oregon seemed to have the same idea so the traffic was difficult. Oh well. Marin really liked the flowers and she walked all through the fields. Quite the nice spring experience.

When she arrived home, Marin was greeted with hugs from her Gram and Grumpy who drove up from Napa, California to spend some time here. We spent a lot of time laughing and catching up before Marin watched "The Chronicles of Narnia" with Gramma. Good movie, good times.

Have a great Sunday,

Marin, Nancy, Matt, Camie & Spidey


Thursday, April 20, 2006 10:54 PM CDT


Another nice spring day, and Marin had a chance to enjoy it... but not before putting in a good effort of rehab. She met her speech therapist Jessie the first thing in the morning before going off to Children's hospital for a session of accupuncture. Marin's reward for an hours worth of needles was a trip to downtown Seattle for some sushi and flowers from Pike Place market.

We're getting ready for a couple big events around here this week and next. Cami's 12th birhday is on April 25th (next Tuesday) but one day can't do her justice! We're starting the celebration Friday when she has some friends over for a movie & sleep over (with cake & ice cream, of course). Then Gram & Grumpy (Matt's parents) are driving up from Napa, California on Saturday for an extended visit and will run the house when Marin and Mom head out for Lourdes next week. We're really looking forward to seeing them. Marin is one of the selected malades for the healing pilgrimage this year and we're excited about this wonderful opportunites for her to experience this.

We hope everyone has a great weekend. Happy Birthday Peach!!

Marin, Nancy, Matt, Birthday Girl, & Spiderboy


Thursday, April 20, 2006 1:52 AM CDT


As the spring days turn brighter, so does our daily outlook and we can't express well enough how nice it is to read the guestbook entries from all of you who share in Marin's journey. When we read the notes from good friends and new friends, it never fails to energize us. When we read to Marin what's been written here, she always has a big smile on her face, and for us that's always one of the best part of the day. We really appreciate how our friends & family are able to stay in touch, and friends of friends make new connections on a daily basis.

Marin charged through a full routine of occupational and speech rehab this morning, and then went to her workout at the pool. She usually needs a good nap after all that, but more and more she's able to handle all of that and afternoon sessions of school as well without taxing her too much. She certainly enjoys her relaxation time, but she's even more determined to get better and so the work ethic she developed through her swimming is really helping her in this most important struggle. We believe she's wining that struggle too.

Here's to never giving in! Have a great Thursday,

Marin, Nancy, Matt, Camlyn & Spidey (also the name of one of the new chicks)


Wednesday, April 19, 2006 0:12 AM CDT

Happy day!

Our house has been quite the scene with the two baby chicks that have arrived. Cami got one from church on Sunday. Yesterday we went to the feed store and got a heat lamp, sawdust, and, another chick! The lady at the store insisted that chicks can't be alone. What are we going to do with chickens!?! Oh well, they are so cute and have really brought a lot of laughs and smiles from everyone.

Marin had her first therapy session today at 9:00a.m. which is early for her. She was grouchy, dizzy, and tired. I made her go to the pool, though, and that changed her whole attitude. The minute she jumped in, a big smile came on her face. Coach Karen gave her two fins and said, "Put these on and do a 200 for warm up." With a little help from dear old mom, Marin had both fins on and started swimming. She was absolutely thrilled that she could swim with the fins, which was a first! Spidey was right there cheering her on, of course. What a blessing the BAC has been for her and all the wonderful people there giving her support. It's really incredible to me because they didn't know Marin before her surgery. Although her demenor continues to improve, she still struggles with communicating and socialization. Regardless, they stand with open arms, again and again, giving Marin the love and support which she so desperately needs.

Ashley, Marin's teacher, was waiting for us when we returned home and they worked hard once again. Ashley is also a such a blessing to Marin and our family through this journey. She celebrates Marin's small accomplishments daily which helps her to try harder everyday.

We really miss our friends back in Atlanta. Our friends here have been great, helpful, and supportive yet it's so hard for me to be a good friend to anyone right now in the middle of such a crises. Time is so very limited with all the care Marin needs that getting out is far and few between. As Marin went to bed tonight, we talked about this very topic. She so charmingly said, "Mom, when I get better, I will help you."

To all you swimmers out there, keep swimming hard and strong. Swimmers are some of the most awesome people in the world and Marin's choice to be a part of the swimming community couldn't have been a better choice with all the support she receives now in her time of need.

Here's to a great day. Chirping dreams from Seattle.

Much love, Marin and Nancy
Matt, Camlyn and Michael too

P.S. We do have more photos from our trip and will try to put more on. We're not that savy with the photos and we have a hard time getting them on the site.



Monday, April 17, 2006 1:59 AM CDT


The angel said to the women, "Do not be afraid, for I know that you are looking for Jesus, who was crucified. He is not here; he has risen, just as he said. Come and see the place where he lay. Then go quickly and tell his disciples: 'He has risen from the dead and is going ahead of you into Galilee. There you will see him.' Now I have told you."

So the women hurried away from the tomb, afraid yet filled with joy, and ran to tell his disciples. Suddenly Jesus met them. "Greetings," he said. They came to him, clasped his feet and worshiped him. Then Jesus said to them, "Do not be afraid. Go and tell my brothers to go to Galilee; there they will see me."
Matthew 28:1-10

Happy Easter everyone. Please continue to pray for Marin's wellness; it's working so far. And please remember our entire family in your prayers as the struggle has been difficult on all of us lately.

Marin enjoyed a nice outing to the movies with her friends and Camie Saturday afternoon. She shared in the fun of Easter baskets with her brother & sister Sunday morning, followed by an inspiring church service, then a yummy Turkey meal with the family. We hope you all enjoyed your loved ones on this holiday and keep the holy spirit each day of the year.

God bless,

Marin, Nancy, Matt, Camlyn & Michael


Saturday, April 15, 2006 12:32 AM CDT


We hope everyone is enjoying a wonderful Easter Weekend wherever you are. Marin spent part of Good Friday working out in the pool where she feels closest to whole. Later, she worked with her teacher here at home before settling in to watch one of her favorite movies, "The Sandlot" (great flick!). Saturday she's going to the movies with her friends Molly & Katrina who've been so kind to continue to include Marin in their outings. At home, we'll be tye-dying eggs and getting ready for Easter Sunday.

Have a great Easter,

Marin, Nancy, Matt, Camie & Michael


Friday, April 14, 2006 3:24 AM CDT


No matter how hard we try, we just can't seem to get anywhere on time (who out there knows THAT story), but then, when does it really matter? This morning, it was an accupuncture appointment, and even though we arrived late, the doctor was even later, so she was the one apologizing... and then she stuck about dozen needles in Marin. What a way to start the day!

It seems Marin is smiling more these days and there's no doubt her gradual improvement is being noticed by others. We had some friends over this evening that we haven't seen for a while and they were so happy to see Marin doing much better. Of course it's kind of hard for her to accept that as a compliment, but it's sincere, and it's a big reason we're all smiling a little more around here.

Have a blessed Good Friday,

Marin, Nancy, Matt, Camlyn & Micheal


Wednesday, April 12, 2006 11:40 PM CDT


Marin was a workhorse today and we kind of pushed it a little bit too much. For her occupational therapy session this morning, she went to the local YMCA and worked on the treadmill, stair-stepper and with weights. It was a good workout but then we went straight to the pool for swim practice with the masters team, and while this went well, Marin was gassed afterward. She felt dizzy after swimming, but a good lunch and a nap helped her feel a lot better. Later in the afternoon she had a school session with her teacher Ashley and Marin was definitely showing good improvement in her reading. We're so proud of her effort and her progress is steady.

In the evening, we enjoyed watching American Idol. We all agree this is the strongest group of finalists. Mom & Dad think Chris is the best, Marin thinks ace is cute, and it's anyone's guess who'll win.

Enjoy the music of your life,

Marin, Nancy, Matt, Camie & Spidey


Wednesday, April 12, 2006 2:25 AM CDT


Because Marin enjoys swimming so much, we're making a more concerted effort to make sure her schedule includes lots of sessions with the noon-time masters swim team every week. So without any rehab this morning, Marin could sleep in late before swimming and there's not a whole lot that she enjoys more than sleeping late! Well rested, Marin had a great workout in the pool. Karen, the masters swim coach, really does a great job of working her and helping her feel good about herself... and this is so important. After swimming, Marin had a school session with Ashley in which they have been going over photos of our trip to the Mediterranean with Marin describing the people and places on our trip. Her verbal communication is so much better when she's able to talk easily about fun and familiar subjects so this type of exercise is really good for her.

We've had good news regarding her response to the chemotherapy with all her blood counts showing good, healthy levels. Her appetite has been very good too, and she's put it to good use the last couple of nights; enjoying a terrific macriobiotic lasagna that one of our new neighbors brought over last night, and then going out for a sushi tonight with Mom, Mike and our good friend and neighbor Kari & her little boy. Bon appetite!

Feeling good and enjoying all we can,

Marin, Nancy, Matt, Camlyn & Mikey


Tuesday, April 11, 2006 1:50 AM CDT


We all really appreciate the great response to the new pictures on the web site and Marin especially felt so good after so many nice notes about her appearance. She's always had an exceptional attitude about her condition, but she's really started to feel better about herself more and more lately and the positive reaction to the recent photos were a big lift for her.

It was a good day of progress as Marin worked happily with her occupational therapist then enjoyed a fun assignment with Ashley, her school teacher. Together, they went through several envelopes of new pictures with Marin telling the story behind the photos for her school work. I think she gets an 'A' today. In the evening, it was just family time... no TV, playing games and cards, with old maid the popular game of the night. An enjoyable day altogether and it was so nice to hear from so many friends & family after posting the new photos. We'll continue to update the pictures a few times a week.

Trying to take it always on the bright side,

Marin, Nancy, Matt, Camie & Mike


Monday, April 10, 2006 2:37 AM CDT


Dig it! New pictures on the website! Now that we've figured out how to resize digital photos to fit on the page, we can offer updates on Marin's photo album here to keep everyone up to speed with what she's up to. Obviously, these latest pictures are from our recent Make A Wish trip to the Mediterranean. Marin lording over the Pyramids of Giza, etc. Check out the photo album and we'll mix in new pictures in the weeks ahead.

A rather wet weekend all together meant quite a bit of quiet time. We enjoyed a nice service at church for Palm Sunday and are getting excited for Easter. Marin spent a lot of time going over photos for her scrap booking, a hobby she's really enjoying. And she's rather good at arranging the pages. It's really wonderful to see how much enjoyment she gets out of the memories from all her pictures.

Here's to making many more good memories,

Marin, Nancy, Matt, Camie & Mike


Saturday, April 8, 2006 10:00 PM CDT


A change for the worse in the weather made it a good day to work indoors as Marin did with her physical therapist first thing this morning. After a couple of inconsistent weeks due to chemo and spring break scheduling, she's getting back to a more normal routine of working. Marin's strenght is good and her spirit remains always strong. Her appetite has been very good and our good neighbors have continues to bless us by helping us with meals.

With a little down time to enjoy, Marin's been having fun playing with Camie & Mike. It's such a joy to see the three of them enjoying one another, playing board games, etc., usually until Mike gets hot-headed about not winning and stirring up the serenity. Oh well, that's what little brothers are all about.

Have a great Sunday,

Marin, Nancy, Matt, Camie & Mikey


Saturday, April 8, 2006 0:47 AM CDT


Another nice day here in the northwest, unfortunately Marin spent most of it indoors going through several hours of psychological testing at Children's hospital. It was really nothing more than a routine evaluation to measure her function and progress, but it sure did take a long time. There was so much testing that Marin needed a nap half way through.

We're looking forward to a good weekend as Marin will get back to doing more of her rehab hours. She went swimming yesterday with her masters group and is looking forward to getting back in the pool in the next couple of days. We really appreciate the continuing notes of encouragement; it's so nice to hear from so many friends and relatives and Marin really enjoys the notes.

Looking ahead to a great spring weekend,

Marin, Nancy, Matt, Camie & Mike


Friday, April 7, 2006 0:12 AM CDT


After some tough reaction to chemo earlier this week, Marin recovered nicely and enjoyed very good days Wednesday and Thursday. We had some terrific weather and with the kids out of school for spring break, we had a great day downtown on Wednesday. We enjoyed the sunshine and the Pike Place market in the afternoon before going to church with the group that will be taking Marin and Nancy to Lourdes later this month. We met several members of the Knights of Malta and fellow malades who will be making the pilgrimage and ate a wonderful meal with the entire group after mass. Marin & Nancy are getting very excited about the journey and we're all looking forward to a little miracle.

Thursday Marin felt very good and handled her therapy sessions with good energy. Then we had another fun family day as we went to the movies. Good times. The girls saw the "Failure to Launch" with Marin's favorite, Matthew McGonaughey (don't tell her we told you, but she digs him). Matt got to see "Ice Age 2" with Mike. More good times. Marin is going for a battery of neurological tests in the morning and we'll let you know how it goes tomorrow.

Looking forward to another great day,

Marin, Nancy, Matt, Camlyn, and Spiderman


Wednesday, April 5, 2006 0:46 AM CDT


Marin about the roughest day yet in reaction to her chemoptherapy. She was very sick for most of the day and we were concerned about her hydration but she started to feel better after a long afternoon nap. Mom did a great job of getting some nourishment in Marin and she was doing much better by the evening. Even through a tough day, Marin made a good effort at speech therapy and a school session. Her spirit and motivation are strong, even on her worst days. Here's hoping tomorrow's a better one for all of us.

Looking ahead,

Marin, Nancy, Matt, Camie & Spidey


Tuesday, April 4, 2006 1:50 AM CDT


It was a very special weekend with just a little bit of a bitterswseet taste. On Saturday she went with mom to the national swim meet in Federal way to see a group of her friends. The visit was wonderful for Marin as she got hugs and spent time with some of her best swim buds from Geoargia; it was great to see Kathleen H., Allie S, Christine P. and Lane B. and lots of the parents who've been friends, teammates, close competitors, and now supporters. Marin really cherished this, but at the same time, due to her speech limitations, it was really hard for her to see her friends and not be able to communicate very well. Such a brave girl. It doesn't really bother her to see people when she's not as functional, but going to this event and seeing so many great swimmers, and knowing she might have been among them competing, was hard for Marin to take. She doesn't wallow long in any pity parties, but when she came back from the swim meet she did feel sad for a while. Above all though, she was glad to see her friends, and so many of them swam really well at nationals. Cangrats to Ariana for winning! the 200 back... awesome.

Sunday Marin started to feel a little dizzy on her fourth day of chemo treatments and it grew worse on Monday. It was the last day of this round and Marin spent a lot of time over the past two days resting. She still had enough fortitude to stick with her rehab and school sessions, but she was worn out and earned some well deserved crash time.

Sweet dreams,

Marin, Nancy, Matt, Cami & Mike

Acknowledgement: Congrats Gators on winning the NCAA tournament... ouch.


Saturday, April 1, 2006 1:48 AM CST


After about five days back on the ground, we're all about caught up on the jet lag and returning to our relatively normal routine. For Marin this includes her latest round of chemo, which this time will run through the weekend due to our off-set schedule since getting home. She handled another round like a pro today, working it in after a session of her speech therapy and then coming home to school work with Ashley. Marin's attitude is great and we believe the positive medical results inspire her, along with the positive notes she receives here daily. Thanks for all the wonderful love & support.

Enjoy a great weekend,

Marin, Nancy, Matt, Camie & Spidey


Friday, March 31, 2006 1:04 AM CST


She wasn't aware of it when she picked out we she would wear today but Marin's hat that she bought in Greece that said 'Greece' on it, she wore to a show tonight and appropriately the show was "Grease". The play was put on by a local high school and Marin's friend Molly invited us to come along. Dad & Camie also went and all enjoyed a really fun night. We've become regulars at the Bellevue drama productions and it's really enjoyable to watch the young performers.

Marin's laughter was especially enlightening considering she spent the day undergoing chemotherapy. Her reaction to the clinical trial drugs has been very positive and the same is true through the first of five treatments this round. They've upped the dose this time, so we'll see if it show more of an affect. Keep your hands together for Marin.

We enjoyed a great macriobiotic dinner of vegetable barley soup and other fixins thanks to our friend Carolyn. Thanks Carolyn.

Have a great Friday,

Marin, Nancy, Matt, Camlyn & Spidey


Thursday, March 30, 2006 0:06 AM CST


Because her MRI wasn't scheduled until late in the afternoon, Marin was able to get in a good workout in the pool before going to the hospital. She swam with the Bellevue club masters team and LOVED it! When I asked her how she felt after swimming hard for the first time in a couple weeks, she said, "Great... and my MRI is going to be great too!" (I really loved her enthusiasm today).

As for the test, she wasn't wrong. Thankully, for the second month in a row, the scan showed no signs of growth and possibly a smaller area of infection. This is very good news and it means she'll continue with her chemotherapy beginning tomorrow. She'll now be taking a higher dose of the medication as her doctor feels she can benefit from it. We'll pray things continue to flow in a positive direction. There's still a long way to go, but Marin's spirit is strong and the indicators are good. One note of concern is the fact that she's lost ten pounds recently, but we attribute that to an inconsistent intake of nutrition on our trip. We'll be fattening her back up with some good home macriobiotic cooking, including her favorite snack of hummus and pesto dip on crackers...mmm mmm! Thanks for all the prayers and new pix coming soon.

Still slagging in Seattle,

Marin, Nancy, Matt, Camie & Spiderman


Tuesday, March 28, 2006 11:36 PM CST


Allowing for jet lag, it was a bit of a lazy day for those in the family that didn't have to work (unlike Mom & Dad) so Marin, Camie & Mike logged some serious lounging. We didn't have any scheduled rehab for Marin because we weren't sure when she'd be starting her next chemo treatment, but Marin motivated herself and was doing a home workout on her own. Mike & Camie contributed some mental stimulation as they played board games together before an afternoon of massive nap-time. Marin crashed from 3 to just before American Idol, enjoyed a great meal of salmon & more cooked-up by Mom, agreed that Chris the rocker was the best on 'Idol' despite what Simon says, then went back to snoozeland.

She has an MRI scheduled for tomorrow afternoon and please pray for a positive report. We expect to begin round three of this chemo trial on Thursday. Thanks again to everyone for all your love & support.

Sleepy in Seattle but happy to be home,

Marin, Nancy, Matt, Camie & Spidey


Tuesday, March 28, 2006 3:41 AM CST


WOW! What and adventure... after two weeks of globetrotting and 48 hours of sightseeing compined with intense travel, we're back on terra firma here in the Northwest and it feels great. Marin traveled very well, handling all kinds of airport hurdles better than OJ in his prime. Michael and Camlyn, too, must be comended for their excellent travel demeanor, taking so much of the burden off of Mom & Dad.

Afte disembarking the Costa Fortuna in Genova Saturday, we spent a wonderful afternoon and evening in the beautifull Italian city. The architecture and life in the streets kept us entertained as we walked through the old-world style streets and alleyways of Christopher Columbus' hometown. Charm was everywhere, inddors and out, and the hotel we stayed in was an elegant example of Italian magnificence. We had a great time, but scrambled through the time-change dto make our flight the next morning to Paris. Once in France, we oooed and ahhed as we taxied to our hotel near the Eiffel tower. On the way, we drove the Champs Elysee to see the Arc de Triomphe. After check-in, we visited Notre Dame, where we said prayers and lit a candle for Marin. An impressive cathedral indeed, even if Knute Rockne, Paul Hornung, and Joe Montana were nowhere to be seen. We boarded a water taxi to ride down the river Seine to see the Louvre & the Mona Lisa. Then to the eiffel tower for some fabulous pictures. This monument has been one of Marin & Camie's most coveted dreams they've shared together & on this day, they have.

After all we'd seen on our trip; the Pope, the Sistine Chapel, the Coliseum, the Great Pyramids, The parthenon atop the Acropolis, the Mediterranean Sea, and plenty of new friends who speak lots of other languages. A most memorable trip, to be sure. The we saw the spledor of Genova and Rome and clearly the highlite of our trip was our four hour stopover in Atlanta where many of Marin & Camie's closest friends gathered to greet us. This was so special and it was a storybook ending to a terrific journey.

Now where back to the grind of reality. Chemtherapy for Marin starts tomorrow, with another MRI due Wednesday. We continue to fight the daily battles and at the same time, enjoy each day with each other. Our regular updates resume as of now... Au revior,

Marin, Nancy, Matt, Camie & Spidey


Friday, March 24, 2006 4:28 PM CST


Arrevaderci from the Costa Fortuna,

Friday was our last day aboard the cruise ship as we disembark Saturday morning in Sevona and spend the day in Gevova before flying to Paris Sunday. We've had a wonderful time on ship and on the stops we've made all over the Mediterranean. To recap, we were greeted by the Pope in Rome, saw the Coliseum, the Sistine Chapel, and the Fountain of Trivi. We cruised by a live volcano at Stromboli, saw Alexandria, Cairo, the Great Pyramids of Giza and the Sphinx, stopped in Cypress, saw magnificent ruins and the house of the Virgin Mary at Ephasis in Turkey, climbed the Acropolis to see the Parthenon in Athens, visited the Olympic stadiums, the island of Olympia, and generally had a great time together. Marin was in good health for the entire trip, with the exception of some dizzy spells from time to time. Cami and Mike actually came down with a bug on the day we visited Athens, but they recovered quickly. We took loads of great pictures and look forward to sharing them with you. We have a long weekend of travel ahead, but spend a day each in Genova and Paris, so we're looking forward to finishing off our journey in style. We'll be back to more regular updates once we're back home. Marin is looking forward to seeing friends on our stop in Atlanta.

Au revior for now,

Marin, Nancy, Matt, Camlyn & Michael


Monday, March 20, 2006 1:47 PM CST


Buena serra from the eastern Mediterranean,

We had a wonderful stop Monday ont he Greek island of Rodes. Such a splendid port with amazing old world architecture and ambiance. We toured the port city from the highest point (acropolis... every Greek city has one) to the sea-side village. Marin enjoyed the ancient ampitheater and Olympic stadium that date back to around 200 BC, and then the old city of Rodes with a surrounding wall and castles that were contructed in mideival times. The really neat aspect of this city is how the ancient, mideival, and modern structures are all functioning at once in a vibrant city today.

We are now sailing up the coast of Turkey where we'll be stopping in Izmir Tuesday. Marin has been feeling great and this trip has been wonderful for the whole family. Our internet access is limited, so we're only updating once every few days, but we're looking forward to reading all your notes when we get back on terra firma.

More from the travel log soon,

Marin, Nancy, Matt, Camlyn, Spidey, & the Colossus of Rodes


Sunday, March 19, 2006 0:20 AM CST


Greetings again from the Mediterranean,

We spent a magnificent Saturday in Egypts where we docked in Alexandria before taking an excursion to Giza to see the Great Pyramids. What an adventure!! The Pyramids and Sphinx at Giza were every bit as amazing as we expected and Marin was pretty amazing herself, touring the pyramids and tombs on foot with her cane. But that was only part of our day as we also went for a wild jeep ride through the sands of the desert where Michael whooped and hollered like Indiana Jones being chased by a band of bloodthirsty nomads. After the jeeps, we rode back to our rondezvous point on camel back! This was equal to anything we've done so far. Marin rode with Nancy & Mike rode with Matt and we all had an great time along the Nile.

We dock in Cypress Sunday where we'll relax and stay close to the ship. Then it's on to Turkey Monday, then Athens & other Greek islands. The trip is going very well. Marin is feeling great and we all are having a much needed good time together. The wonderful people at Make A Wish have really done an amazing job for us and we are very appreciative. For anyone who'd like to keep track of our journey, we're cruising on the Costa Fortuna and there's a tracking portion on their web site (Google Costa cruises).

Ciao for now from the Mediterranean,

Marin, Nancy, Matt, Camlyn & Michael
Thank you Make A Wish!


Wednesday, March 15, 2006 2:51 PM CST

Bon Journo,

We're here!! After 27 hours of planes, airports, delays, we barely made it being the last people on the boat but it's been worth it.

We tried to catch up on sleep and woke up bright and early to begin our day in Rome!! Our day started with being greeted by Pope Benedict XVI himself in St. Peter's Square. We continued on seeing all the sights Rome had to offer, among them the Sistine Chappel, the Pieta, the Colosseum, the Fountain, etc. The day was sunny, fun, and unbelieveable!!!

Marin is feeling great and laughed a lot as we were wisked through the streets of Rome in one of those crazy little cars!

Love to all! Ciao,

The Morrisons - Marin, Nancy, Matt, Cami, and Spidey


Monday, March 13, 2006 0:55 AM CST

Well, We should all be in bed, considering the shuttle is picking us up at 4:30a.m.!! Needless to say, Cami and I are still up getting ready, Marin just went to bed, Matt is still at work, and it's midnight!

This is a much needed vacation for all of us. Being the mom, I am both excited and nervous. I want Marin to feel great, don't want to loose any medications or forget to give them to her, and I want to make sure she gets enough sleep. We will be traveling until Tuesday evening at which time we will set sail at 5:00p.m., France time.

We have every intention to update Marin's wepage while on our journey. We will do it every other day.

This fight for all of us, you all included has been exhausting! Those of you who continue to fight hard with us means more than you could ever imagine.

Marin tried hard to contribute getting ready for her big trip. She packed all her own stuff, vacumed the upstairs, made sure all our "critters" had food and water, and got all the camera stuff ready. She continued to be a little dizzy, but nothing like yesterday. I think her brain is excited and the processing being all messed up, triggers her to be dizzy. I have kind of been a emotional disaster these last few days and perhaps its her way of dealing with it. I am feeling strong once again and ready to journey on.

Bon Jour to our friends and Family!!!

Much love, Marin and Nancy
Matt, Cami, and Michael


Sunday, March 12, 2006 2:54 AM CST


Getting ready for the big trip is exciting around here but stressful, too. Packing for a family of five for two weeks, and taking a four year old can be one big headache. Nancy is amazing but it takes a lot out of her to get this mobile unit organized. Speaking of a headache, Marin spent most of Saturday with dizzy feeling preventing her from doing much more than relaxing, which is a good thing. Her latest blood test results show all her levels are strong and she's fully cleared for cruising. Another wonderful neighbor of ours, Janet, worked a little magic on the telephone and helped us secure a day in Paris together on the way back, so we're thrilled about that. In the meantime, we're simply trying to get ready before we leave at the crack of dawn Monday morning. Here's to a much-needed vacation and all of Marin's wishes coming true.

With Love,

Marin, Nancy, Matt, Camie, & Spidey


Friday, March 10, 2006 0:20 AM CST


Marin started the day by getting stuck... by her accupuncturist. It's one of her treatments to help her mobility and even with needles sticking out of her body, including sveral in her scalp, she says she likes it! Accupuncture is becoming more accepted as a mainstream treatment in western medicine and Marin is treated by an MD at Children's Gospital who is also certified in accupuncture. In the session today, she even hooked up Marin to an electric stimulator that she thought was pretty cool.

Between eating meals and downing supplements, the remainder of Marin's day included a session with her speech therapist and her school teacher Ashley, who contributed a terrific note in the guestbook here today. The wonderful aspect of this experience is the people we're coming to know and every one has contributed to Marin's recovery and our family's well being.

Looking ahead to a great weekend,

Marin, Nancy, Matt, Camie & Mike


Thursday, March 9, 2006 2:14 AM CST


A touch of heartbreak for us this evening as we were reminded of some of Marin's difficulties we may have been overlooking. Some good people from our local church had reached out and arranged a 'movie night' for Marin to meet some local high school girls. We planned this beginning last week and preperations were made to meet at the home of a family near by. The idea was good, and Marin seemed happy about it... but when the time came to go inside and meet the group, Marin came to tears. She said she just felt horrible about her condition; her limp arm, her hair, acne, and the fact that she couldn't speak well enough to keep up a decent conversation. The prospect of trying to make new friends, a bunch all at one time, just overwhelmed her to the point she just couldn't possibly enjoy it. So she apologized to her hosts and returned home, both she and Nancy in tears. This was both terribly dissapointing and a relief for Marin. We decided we would stay connected and try to get to know these good people a little more slowly, in a setting that's more comfortable for Marin, until she starts to feel better socially. The incident reminds us of how far we still have to go, but at the same time, how far she's come. We're very proud of our dear little Marin.

Looking forward to TGIFriday 'cuz we set sail Monday,

Marin, Nancy, Matt, Camie & Spidey


Wednesday, March 8, 2006 0:25 AM CST


Marin had lots of activity Tuesday, most of it enjoyable and some of it simply necessary. She started the day with some blood work down at the local office where she's become a regualr and on a first name basis with the lady who draws blood. Coming off her week of chemo, it's a little extra hassle to find a healthy vein as her one good arm is full of needle punctures already. But she's tough and it doesn't take long at all. After that, we hit the pool for a good workout and Marin felt and looked strong. She spoke with the masters swim coach who holds a mid-day workout and she said Marin would be welcome to work out with the team. Good idea. In the afternoon, Marin had a session of school where her teacher is focusing on some of the ports we'll be visiting on our upcoming trip. Marin also worked through a session of physical therapy and she continues to impress her therapists with her steady progress. A full day indeed.

In the evening we received a visit from Melanie of the Make A Wish Foundation who went over out itinerary and piqued our excitement for the trip. She brought over a backpack full of gifts for the kids to take on the long journey. The reality sank in as she went over the itinerary and Marin was very happy. The Make A Wish people have been extraordinary in making this trip happen for Marin and our family and we are amazed at their generosity. Thank you!!

Busy but enjoying the time we have,

Marin, Nancy, Matt, Camie & Michael


Monday, March 6, 2006 1:59 AM CST


Following her five days of chemo treatments, Marin enjoyed a good weekend. Sleeping-in is a luxury she's earned, and she took advantage of that big-time on Sunday. Then she put her energy to good use with a workout in the pool with her paraswim team. After a nice dinner at home (sushi) we watched the Oscars and were happy to see Reese Witherspoon (one of Marin's favorites) win the Best Actress award.

We're mixing in some new photos on the web page so check it out from time to time as we work some new ones in. I'm still trying to re-size some we've taken recently so they fit the page and hopefully we'll have more soon.

Looking forward to a good week,

Marin, Nancy, Matt, Camlyn & Spidey


Saturday, March 4, 2006 2:09 AM CST

Yea! Chemo done for another month. Marin sailed through like the champ she is. Her arm is full of bruises from all the poking with needles they do. She is in great spirits, enjoying life as she knows it, and maintains the survival mentality. How could we ask for anything more in the face of such adversity. Once again, we are truely blessed for having her.

Marin's therapy was very light today with only Ashley her teacher coming in the afternoon. It was a nice way to end a gruling week. We are all feeling good today. Cami has been a little sad missing her friends back in Atlanta which is totally expected. She's happy here but doesn't want to miss anything there as well.

Matt is doing the special olympics for the next three days. He really enjoys doing this. Spidey is happy being 4 and is probably the most spoiled four year old you ever met! Here's to a very happy weekend. Remember that we enjoy each and everyone of your entries, phone calls, cards, etc. Thanks for keeping the spirits soaring. After the MRI results on Friday with no noticable growth, we KNOW that prayer works. Keep those prayers coming.

Sweet dreams,

Marin
Nancy, Matt, Cami, and Michael


Friday, March 3, 2006 1:41 AM CST


Four days down, one to go in this week of chemotherapy and once again Marin is handling the load with amazing resiliency. No ill affects to speak of, and she just shrugs off the fatigue. She deals with this adversity with such grace it's sometimes easy to overlook just how difficult she has it, and I was reminded of that in our car ride home from a night out. Her friend Molly invited us to see an improv performance (very funny) at her high school and we had a really good time. A nice young man we met earlier knitted Marin a cap and she wore it proudly. Being out and seeing people her own age was good for Marin and we really enjoyed the show as well as Molly's company, but afterward she became a little sad because she's not able to socialize the way she would like to. I still get the sense Molly's able tune-in to Marin, but it's hard to relate when conversation is so difficult, and she still feels a bit self conscious about her mobility and her acne (which is getting much better). Marin shed a few tears over this and a realized it was a good emotional release for her. The day to day struggles for her are just heartbreaking, yet despite the occasional tear, Marin's spirit is never broken.

She told me tonight that she really hopes she can swim well again because she really misses it. We talked about her opportunity to continue competing, for the time being, in the para-swimming program and while she's up for the challenge, she's still thinking beyond. Once again, a healthy attitude, I think, as she's not giving in to anything. She remains steadfast in her therapies and school work and she really enjoys the games we play that challenge her cognitive and verbal skills.

We're looking forward to finishing the second round of this clinical trial chemotherapy and continued progress, and of course to a great weekend ahead. We hope you have a good one too.

Cheers!

Marin, Nancy, Matt, Camie & Spidey



Thursday, March 2, 2006 0:22 AM CST


We've had a lot of strong emotional moments this week and Wednesday brought another. Several weeks ago, lots of swimmers at the county and state meets in Georgia reported how several teams had recognized Marin with speeches and with emblems and slogans on their t-shirts. Today, Marin received a package from her coach Jenny at Collins Hill who included a beautiful note and a letter award for Marin as part of this year's team. The bar for her CHH Letterman jacket is wonderful and is a great addition to the coat that she wears everywhere (she's known for it around here). Also included were a couple of the shirts from neighboring high schools that the swimmers wore at the state meet. We were told about these shirts, and were happy to hear about them, but when we saw the Parkview and Central Gwinnett shirts with dedications to Marin, we were moved to tears. We didn't realize how really special this gesture was until we held these shirts and we want all the Gwinnett swimmers, coaches and parents to know how truly appreciative we are that our friends and competitors honored her in this way. Thank you!!

Marin's third day of chemo treatments this week went just fine and dandy. No ill effects to speak of and she was right back at it for a PT rehab session, her school lessons in the afternoon, then went for a swim in a swim-spa unit we had her try out. Swimming in place against jets of air takes some getting used to, but Marin said she liked it. It is an interesting concept that's gaining popularity here in the northwest, where pools aren't hugely popular but exercise is. We'll continue to look in to the possibility.

Tomorrow night, Marin will be going out with her friend Molly, who's made a real effort to help Marin socially. She's looking forward to a night out, and it's special for her to pick out clothes to wear that aren't sweat suits. A slice of normal teenage life is wonderful right now.

Like struttin' the red carpet,

Marin, nancy, Matt, Camie & Spiderdude


Wednesday, March 1, 2006 0:47 AM CST


Day in and day out it continues to amaze us how Marin just keeps hangin' tough. Up & at it again today, another round of chemotherapy (about 2-hours with an IV), and after a little lunch, she was ready for a work-out with her physical therapist. She met Marin at the hospital and they went straight to a nearby gym to work on the treadmill and do some weighlifting. No complaints, just work. And she still had enough juice when she got home to make Dad a special hand-made birthday card (it made us all cry!).

The positive news we received yesterday after her MRI was like a fresh tank of gas. We're mentally re-charged and very hopeful as we charge ahead with her program. The macrobiotic diet is really quite exciting as we discover new foods and recipes, like the chocolate chip cookies made out of white beans, and the brownie cake we had tonight for the birthday party made with all natural ingredients and no sugar. Our friendly nieghbors are all experimenting with us and it's become a nice way to spend time together, trying out interesting recipes that are good for you!

Try it, you'll like it!

Marin, Nancy, Matt, Camlyn & Mikey


Monday, February 27, 2006 9:16 PM CST


We're breathing a big sigh of relief after today's visit to the hospital. Today's MRI showed there was no discernable growth of the tumor over the past month, which is a good sign. Our thanks to everyone who's prayers have no doubt contributed to Marin's positive news today. We're also feeling very positive about the macrobiotic diet and schedule of supplements we've been following closely.

So because the scan looked good, Marin started her second round of the clinical trial chemotherapy today. She'll do the same routine if IV's for the next four days. After a full day today, she felt a little feverish and headachy, but she started to feel better once she was home and had a chance to eat some dinner, which was delicious and provided by our neighbors Sue & David.

Among the well-wishes that continue to arrive, Marin received a package & letter from her friend Layne Brodie, a swim bud from GA. She sent Marin a Georgia State Swim Championship T-shirt signed by all her friends & competitors who were at the meet this year. Reading all the names is such a delight and very touching for Marin. Thank you all for keeping her close in your heart and for the prayers that continue to to help.

Thankful for each day,

Marin, Nancy, Matt, Camie & Michael


Monday, February 27, 2006 0:59 AM CST

Good day friends and love ones,

Today we actually made it to the 9:00a.m. church service. All five of us together! The pastor is talking about the ten commandments. It amazing that we all hear about these "commandments" yet really don't take the time to study and ponder what they really mean. Striving to make ourselves better everyday holding us good morals and values is a real challange in itself. We have definately met many wonderful people rising to the challange of trying to live within these commandment guidelines.


Marin is feeling great and continues to be strong, positive, and working hard. Although she doesn't have any therapist come on Sunday, we find ways to keep her working. She did go and swim with the paraolympic group she practices with once a month. The coach wants to time her to see where she would stand for her classification. In the paraolympics, they rank you on a 1 to 12 scale based on your imparement. They rated Marin a 6. There is then time standards based on each of the number rankings. Marin has lost a lot of muscle mass due to all the drugs, the surgery, the paralysis, and now the fat restricting diet. We also don't make it to the pool as nearly as often as we would like due to the time it takes to get there, get in, out, etc. We have been checking out one of those continuous lap pools that we could put in the yard where she could go out there daily and swim.

Tomorrow is a big day. We have the MRI at 12:30. The doc will then read the results and determine if the tumor has grown or not. We will update as soon as we get the information. If not, we will start round two of the clinical trial tomorrow as well. We pray with faith and hope that it is helping and we will be able to proceed as planned.

The love and support continues to pour in as well. Thanks to you all for the wonderful gifts over the weekend. The t-shirt from the State Championships is incredible!! The belated valentines gifts are sooo appreciated from Marin as well. There is a Sammamish Mom's club here in our city who collected games, cards, etc and brought them over to the house today. Marin really lit up when she saw all the games. She used to play games every night with her friend Stephanie in the Ronald McDonald House back in Atlanta. I have tried to play games with her frequently but playing games with you parents or your four year old brother who always has to win isn't quite as fun! Thanks again to all!!

This is the time of year when we all start getting sick of winter and wonder if spring is ever going to arrive. We are praying for the winter in Marin's world to end and that spring takes birth in her life.

Living off kindness, prayers, and God's love.

Your daily writers,

Marin, Nancy, Matt, Cami, and Michael


Sunday, February 26, 2006 1:09 AM CST


Enjoying a nice weekend with Marin has many rewards, some of them uniquely amusing. She's always enjoyed playing board games and cards, and now even more so because they're also good exercise for her mind and her speech. She is quite competitive in checkers, except when she plays Mike because he's a sore loser. It's also a hoot to watch Marin humor her little brother in a game of chess. Playing scrabble is a bit of an adventure when she has a hard time distinguishing the sounds of an "f" from an "n". God bless the dear little girl, she shrugs off her confusion and generally deals with her struggle with good humor. She has a good time anyway and at the same time she really is improving.

Friday Marin enjoyed an evening out at the movies with her friends Molly and Katrina. It's really special how these young ladies have reached out to Marin and are helping her get back on her feet socially. Even while she can't carry on long conversations, she really enjoys being part of the action and after the movie, the girls sat and talked at a coffee house for quite a while. We're very heartened to see her interacting like a normal teenager, and knowing how importatant this is to her. At the same time, Marin continues to hear from so many of her friends from Georgia who continue to make good efforts to let her know how much she remains close to them. Her good swim bud Sarah L. sent a Valentines care package this week and it really made Marin's day.

She spends quite a bit of time on a new hobby she's developed, scrap booking our piles of family pictures. Marin really enjoys looking at photos and she's had a lot of time to partake recently. Actually we all enjoy this, and for Marin it's become a nice way to spend some spare time and contribute at the same time. She continues to kick butt in her physical therapy, with the most recent breakthrough being able to scoot herself around in our rolling desk chair, eliciting another new game that Mike is eager to play with her.

Enjoying every day,

Marin, Nancy, Matt, Camie & Mike
In memory of Jarrett Boston


Thursday, February 23, 2006 11:46 PM CST

Wow!! How can a whole year pass by in a moment? It seems like yesterday those unthinkable words passed by the doctors lips. To think, so many of you we hadn't even crossed paths yet. We welcomed you into Marin's and our world and have shared very personal and heart felt moments together. We all thought that Marin was inspiring back then!! Just look at her now baby!

Thanks for sticking with her and us, through the thick and the thin. Thanks for continuing to lift her up in prayer. She will be a miracle!

We have just finished watching American Idol. Marin's eyes were twinkling as Ace hit the stage and she commented "he's hot!"

Marin worked hard all day. She went to a vision therapist today to see if we can get some exercises going for her eyes to help with her right side. When she came home, she wanted to get on the eliptical that we got for Christmas. When we first brought it into the house two months ago, she couldn't get both her legs on it. (It's a pretty flimsy, cheep one). Today, however, Marin climbed up onto it, and rode it for 10 minutes! Determination is still Marin's middle name. After that her ocupational therapist came and worked her a lot on her hands and knees. Marin doesn't like doing this at all, and neither do her therapist, but mean old mom makes them. I have read that taking her back to the beginning, crawling position, will help her brain rewire and potentially get activity into the right side. It also is proven to help with trama and stroke patients to connect the brain for learning again.

Ashley, Marin's wonderful teacher, completed her working day with phonics work and reading some more pages of her book they're reading together, "I Know What You Did Last Summer." Ashley is becoming almost a part of the family and brings such joy to Marin with her enthusiasum and compassion for Marin.

We are on route for starting round two of the clinical trial on Monday, Feb. 27th. We also have an MRI scheduled to see if the tumor has stopped growing. If it has grown at all, she will be eliminated from the trial and we would move onto another option.

We pray with all our might that the tumor has stopped growing. We have scheduled Marin's Make a Wish journey to cruise the Mediteranian on March 14th if all is good with the MRI. She is so excited about this trip. As always, our hope and continued strength will get us through this next step.

Cami and Michael are doing great with finding friends and settling into our surroundings. I received a call from Cami's gifted teacher today and it was one of those calls every mom dreams of getting. She said Cami was a joy to have in class, how much she was thriving, and thanked me for sharing Cami with her. I get concerned about Cami and Mike, in addition to Marin, and then God's grace shines down on us to keep me plugging away another day.

For all the continued support, we bless each and everyone of you. Keep the suggestions, advise, prayers, hopes, and support coming. We're starting now on year two with renewed strength.

Charging on,

Marin and mom
Matt, Cami, and Michael too!



Wednesday, February 22, 2006 1:36 AM CST


From time to time our energy runs thin and on days like this the entries in Marin's guestbook serve as great inspiration. It's awesome, and humbling, to realize how many people are following Marin's journey, with each and every one contributing something positive to her recovery. It's coming up on one year since Marin was first diagnosed with a brain tumor and this web site has had over a quarter million hits.

Over the past 12 months we've learned a lot about things we never thought about before and although no one would wish this situation on their worst enemy, there has been some positive aspects to our experience. Foremost is the basic goodness that's come to us from so many different people in our lives, and many, many more we may never meet. From friends and family members helping in so many ways, to friends of friends, acquaintances, community members, school mates raising funds, others all across the world interested in her cause, and so many other great people supporting our family through this difficult time. The lesson we've learned is that people want to help, and while it was hard to accept this at first, we understand the importance of allowing people to help. It's a win-win-win situation for all involved and we are so very grateful for everyone's energy, effort and prayers.

Looking forward to tomorrow, always with appreciation,

Marin, Nancy, Matt, Camlyn & Michael


Tuesday, February 21, 2006 0:33 AM CST


With all due respect to George & Abe, the national holiday doesn't mean a day off for Marin. She's inspired to get better, so doing nothing's not an option. She hit it early with her physical therapist and worked out at a neighbor's home gym but became dizzy & cut her session short. After a little rest though, Marin was ready to fire back up and she was enthusiastc about going for a swim. The good folks at the Bellevue Club make her feel so special even when she doesn't feel her best. You can see in peoples faces how much respect they have for Marin because she's always in there going for it. That's how we all feel.

The macrobiotic diet is sinking in and it's kind of amazing how good the recipes are. Our wonderful neighbors once again brought a terrific healthy meal that we all enjoyed. Marin's appetite remains healthy and she supplements her meals with approximately 3 dozen pills (medication & supplements) every day. You can count the pills themselves as an entire meal!

We had a nice time watching a tape of her high school swim season last year sent to her by a teammate Greg Tunning & family in a Valentines box. Marin is very sentimental when it comes to her friends and seeing so many faces she hasn't seen in a while really touched her heart. Thank you.

Miles away, but never far apart,

Marin, Nancy, Matt, Camlyn & Spidey


Sunday, February 19, 2006 11:05 PM CST


Folks in Seattle may be used to seeing teenagers with unusual hair styles, and although unintentional, Marin's certainly qualifies in that category. But to be honest, she's looking really good with the half-shaved look. The left side of her head around the area of her surgery where the radiation was most concentrated still hasn't regrown, but the other areas around the top & such is thick with about a half inch of new turf. With her long hair that she kept through her treatments, she can still make a ponytail & fling it around a little bit. The two contrasting lengths actually looks pretty cool, although she rolls her eyes when we tell her that. She's getting better, but it's hard for her to see it in the mirror.

It's special to think of Olympic athletes in Torino sporting 'Wave of Courage' shirts and tuning in to Marin's story. Thanks Mark, we hope you're having a great time at the Games. Go USA!

Winning every day,

Marin, Nancy, Matt, Camie & Spidey


Sunday, February 19, 2006 0:30 AM CST


A spectacular clear day here in the northwest was enough to offset some very chilly temperatures. Marin has been feeling good and she really enjoys getting outside when the weather allows it, which today meant just a little fresh air because the cold sinks in quickly. Her daily routine now includes almost constant intake of either food, drink, medicine, and supplements. If there's a world championship for pill-swallowing, Marin is in gold medal contention!! The new diet is opening up some nice options, like today's oatmeal & whole wheat pancakes... we all loved 'em. In between scarfing down on health food & supplements, Marin spent a couple hours Saturday morning working with a therapist, continuing to make all of us proud with her determination. Then we went out together as a family to the movies and really enjoyed "Nanny McPhee", not our first choice but surprisingly charming as "The Pink Panther" was sold out. A good day spent together.

Hoping your weekend is just as nice,

Marin, Nancy, Matt, Camlyn & Spidey


Friday, February 17, 2006 0:38 AM CST


Marin enjoyed a really good day, beginning with a big hearty breakfast, a million pills, and a good long swim in the pool. She had lots of energy & went through a complete work-out lasting about an hour & 20-minutes, and once again she proved Dad's no match for her in the pool. It was a joy to see her work out the way she always has and getting so much pleasure out of her time in the pool.
At about the midway point of her clinical trial cycle, about two weeks out from her last chemo treatment, Marin seems very good right now, very with-it, and her teacher Ashley was pleasantly impressed with Marin's conversation today. In addition to school, she had speech therapy and played a lot with Michael. Lots of good, healthy food and lots of supplements and a good full day all around. 're

We feel so fortunate to have so many caring neighbors who've offered help. Nancy got together with several of our friends this evening, and they've agreed to go macrobiotic with meals they bring. That's in addition to supporting us in so many other ways. Thank you so much for all your care and effort.

Carrying one good day in to the next,

Marin, Nancy, Matt, Camie & Spidey


Wednesday, February 15, 2006 11:32 PM CST


Back to the salt mines today as Marin hit the rehab dial on full power. Physical therapy, speech therapy & school work were the order of the day and she had good energy throughout the day. We're fine tuning her diet by applying the information we learned at Dr. Block's clinic in Chicago and we're all rather excited about some of the foods and recipes that are comprised of all natural ingredients. Marin is excited about the potential for so many different dishes to spice up her routine.

Marin's physical progress continues to yield results. Today, with the help of a muscle vibrator, she was able to flex her right hamstring and glute, which is something she's been working very hard on in PT. This evening, we got out as a family and visited Michael's pre-school for a 'friendship festival' and Marin was wonderful socializing with the teachers and other families.

One of the recommendations from Dr. Block was to find the use of a hyperbaric oxygen chamber to help with Marin's physical recovery. He was very convincing in the results of stroke patients who've employed this tool. We're now searching for a facility in the area that can help with this. Thanks for all the well wishes regarding Marin's trip to Lourdes and the happy Valentines.

Hoping for a little sleep, but never resting,

Marin, Nancy, Matt, Camie & Mike


Wednesday, February 15, 2006 1:39 AM CST


Marin & Nancy returned home from Chicago feeling very encouraged after two days in consultation at the Block clinic. Among the information they took in today was a cooking seminar to learn about some amazing ways to use holistic foods and ingredients to make some yummy dishes.

On another front, we heard some wonderful news in the past 24-hours as Marin has been selected to make the pilgrimmage to Lourdes in April! We were all thrilled to hear this news and Marin is particularly touched. We feel so blessed right now. So many friends, family, neighbors, and others in the church & community have done so much to help us recently, including a fund raiser at Camie's school that was so inspiring; the positive input we've received from Dr. Block & many others fuels our hope; and now we're feeling a little divine intervention with Marin's selection to be blessed at Lourdes. We're so grateful.

Thank you for sharing our burdens & joy,

Marin, Nancy, Matt, Camlyn & Mikey


Monday, February 13, 2006 5:03 PM CST


After a nice stretch of great weather, the rain returned to Seattle Monday... but it's not snowing (!!) like it is in Illinois. Marin and Nancy spent the day at the Block clinic in Evanston where they report a very good day of testing and consultation. Marin's blood levels look mostly good two weeks out of her chemo treatment with only her white cell count a little low, but nothing to be too concerned about. There will be a more thorough analysis available after a few days. Nancy says they've learned lot during their session with Dr. Block who emphasised and helped focus the nutritional approach that's vital for Marin right now. He had some good input on some other holistic approaches, some to fight the cancer, some to help with her paralysis. After another half day consultation tomorrow, the girls are flying home Tuesday evening. In the meantime, they'll enjoy a nice seafood dinner and an evening in the hotel where the can watch "The Bachelor" with no distraction from a certain web-spinning 4-year old.

Sleep tight,

Marin, Nancy, Matt, Camie & Mike


Sunday, February 12, 2006 1:46 AM CST


It's a little still in the house this weekend as Marin & Nancy took off on a red-eye Saturday night out of Seattle headed for Chicago. After catching up on their rest Sunday, they'll meet with Dr. Keith Block in Evanston for a two-day consultation to sharpen our focus on the nutritional, supplemental, physical, mental, spiritual as well as medical angles on fighting Marin's cancer. Dr. Block is an MD as well as a naturopathic doctor and is among the leaders in a growing segment of healers who know believe the affective treatments go beyond what the medical establishment is generally willing to endorse. We're in the do everything possible mode, and we believe this is an intelligent step. Marin is still undergoing medical treatment through the clinical trial in Seattle and her trip to Chicago is designed to support that the best way possible.

From a mental stand point she's doing very well, and when we read the guestbook entries that express how inspiring Marin is, she in turn is inspired to win this struggle. We were happy to see so many of Marin's close friends do so well at the GA state swimming championships, with Abigail, Aileen, Ali & Caitlin winning state titles. Marin was thrilled to hear the news and we're all so proud of you!!

Here's to a great rest of the weekend,

Marin, Nancy, Matt, Camie & Michael


Saturday, February 11, 2006 0:43 AM CST


For those of you that follow this journal regularly, you're no-doubt aware that both Nancy and I contribute the daily postings... in two very distint writing styles. I must say, I really enjoy reading Nancy's entries very much. She has a such a good touch when it comes to the day to day emotional impact of Marin's struggle and it's wonderful to watch her talent as a writer come out. Ah, but tonight, you get me (Matt, meat & potatoes) again.

Off to an early start Friday, Marin and I spent the morning at mass with the Knights and Dames of Malta. This is the catholic group that is considering Marin for a healing pilgrimmage to Lourdes, France later this spring. We won't know if she's selected until later this month, but we already feel blessed to be welcomed in to their group. Marin did very well socializing with the others at the healing mass and it was nice to see her enjoying herself in that setting. Afterward, we took advantage of a magnificent day and spent some time along the downtown waterfront, sipping hot drinks and soaking in the spectacualr sunshine. Marin had a smile on her face almost the entire day.

We're thinking of our many friends in GA swimming in the state high school championships this weekend and we're rooting for all of you. Marin is anxious to see the results and is so happy to see so many of her good friends doing so well. All pumped up on swimming, she received a package from Lane Brodie that included a Team Dynamo signed kickboard the made her day. A giant yellow get-well kickboard will do that. Thanks Dynamo and good luck everyone at state!

Olympic dreams for all,

Marin, Nancy, Matt, Camie & Spidey


Friday, February 10, 2006 1:02 AM CST

Today was a tearful day for dear old mom here. Some days are just like that. Most days I am strong and courageous, just like Marin ALWAYS is, but every once in a while I break down. Then I log on, and read all your wonderful things, feel all the wonderful support, and we are looking up again.

As the swimming year winds down for Georgia state, It can only make Marin smile. Her dear friend Jordan talking about her, Coach Puckett and his team putting Marin on the back of their shirts, the Wave of Courage Foundation standing strong with us in Chicago.

And now, the support continues to pour out here in Sammamish as well. Cami's school (Marin's little sis) had a pizza bingo tonight and they set up a table and raised money for Marin in helping the fight continue, the wonderful dinners keep coming, and the prayer chains continue to grow. We feel the support, love, and feed off the strengh from all over the world. THANK YOU!!!

Marin had a tiring day and was a little "spacey" by the end of today. She had to wake up at 7:30 to go to an Accupuncture appointment, which in her world, is quite early. After that, a therapist met her at the doc's office and took her to a gym to workout. She then came home to be greated by her speech therapist, school OT, then the school homebound teacher. by 6:00p.m., she was wiped out! We ended the day reading your wonderful entries.

The sun was shinning bright here in Seattle today. What a georgeous place. Driving down the hill from where we live, there is a lake, then in the distance, mountain all around covered with snow. You can only smile and thank God for all this we see, and I'm thanking him in advance for healing our Marin!!

Spectacular views to dream about,

Marin, Nancy, Matt, Cami, and Spidey


Thursday, February 9, 2006 2:07 AM CST


Wednesday was a good day all around. The weather was nice and Marin felt good enough to get out and enjoy it. We have a large common area just beyond our backyard fence, and lots of the neighborhood folks were out taking advantage of the sunshine and of course Marin wanted in on the action, especially after seeing Mikey & Mom having such a good time flying his new Spiderman kite! So Marin just made her way out the backyard fence and moseys out to the green without her cane... no problem. The look on her face said it all as she was just glowing in the sunlight.

We've nearly put the finishing touches on the upcoming trip to Chicago for a consultation with Dr. Block at his cancer center. Some very generous travel help has been made available, relieving us of some of that stress. Marin will travel with Nancy for her two day appointment on Monday-Tuesday. Again, she's feeling well right now with no reason not to travel. Her rehab continues to produce steady, if slow improvement on the physical side but her speech seems to ebb & flow. Marin looks good and feels good; she's focusing on smaller muscles in her hips and shoulder that are starting to come around, and she's always putting a tremendous effort in to her work. She always loves hearing from friends and family, she's very inspired by all the well-wishes.

Future's so bright...

Marin, Nancy, Matt, Camie & Mike


Tuesday, February 7, 2006 11:45 PM CST


Another nice day here in the northwest and while Marin felt better, she's still a bit under the weather. She worked in about a half day of rehab and school and she did go to the pool but only observed as Camie, Mike, and Mom worked in a little exercise in the water. While we return to a relatively normal schedule of rehab here between chemo sessions, we're also planning a trip to Chicago for a consultation with a highly regarded naturopathic physician named Dr. Keith Block. We're looking for the optimum combination of medicine, nutrition, physical and mental therapies to combat Marin's cancer. We're coming up on one year since the initial diagnosis, and we're feeling very hopeful with all the support we've been receiving.

It's wonderful to see so many good friends, former co-workers, and acquaintances taking the time to write in Marin's guestbook. The emotional support in hearing from all of you is immeasurable. Thanks for all the love.

Feeling stronger every day,

~Marin, nancy, Matt, Camie & Spidey (now 4)


Tuesday, February 7, 2006 0:48 AM CST


A second straight day of nice weather here but it wasn't a great Monday for Marin as she felt kind of lousy all day. Nothing serious and she was still plenty tough enough to deal with a therapy session and school work. She put on her swimsuit to go to the pool in the hope that by the time we drove there she would feel better, but she just wasn't up to it. She did have blood drawn, which she'll do twice a week between chemo sessions.

Marin is eating well and today it was a typical feast of cancer-killing fare... raspberries, blueberries, etc, and for dinner, our neighbor Kelli brought over some delicious chili (thank you!) and Marin chased it with a heaping helping of broccoli. We chilled out in the early evening with a rented movie before checking out 'The Bachelor' (can you believe he kept the psycho over the cute blonde?) C'est la vie in Paris.

With a better day on the horizon,

Marin, Nancy, Matt, Camie & 4-year old Mike


Monday, February 6, 2006 3:20 AM CST


Well, SuperMike Sunday didn't go so well for Seattle, but we had a good 'ol time here anyway. We watched the game with a few friends, firing up the grill for the first time since a record rain streak greeted us upon our arrival a couple months back. The burgers, chicken, and TWO cakes were great; the officiating crew was not.

Marin enjoyed socializing with our guests, even if her conversation was brief. She really likes being around people and it's great to see the smile on her face when company comes around. Like Mike, & Cami, Marin was excited to celebrate Spidey's birthday and we all enjoyed having friends from the neighborhood drop by for a slice of Dad's special birthday cakes. Presents for the birthday boy included a Spiderman tent, a Spiderman riding a toy motorcycle, and a Spiderman Kite. Thanks for all the callers who sang 'Happy Birthday' in to our answering machine (we're forwarding the tape to Simon Cowell). We hope you all had a good weekend, too.

Upon further review, we had fun!

Marin, Nancy, Matt, Camie & Birthday Boy!


Sunday, February 5, 2006 5:43 AM CST

Today is Superbowl sunday!! (Yet extremely early hear.) It's also super Mike birthday (he's 4). Saturday was a relaxing day for our Marin. She finally got to go swimming after a week long on hospital torture. She said the water felt great on her skin and she felt stronger that she has felt in the last few weeks. I know she lives for the day that she can get into that pool daily. I know that day will come!!
We continue to settle into our house in the great Northwest. The help from the neighbors has been something that was so completely necessary yet we didn't realize it. I have been thanking God everyday that he moved us to a neighborhood like our old one, with so many wonderful people. There is a friend here in the neighborhood who teaches voice and piano. She has generously offered to come over and give Marin lessons once a week. Marin loves to sing and all the therapist say her comprehension increases significantly when she is sung to. She said Cami could do it also since she wants to be a moviestar (among many other things) when she grows up.
The Lord is working in our lifes and in each and everyone of yours. We feel you efforts, prayers, tears, and hope along side of ours.

May you have a blessed Sunday and GO SEAHAWKS!!

thankful, Marin
Nancy, Matt, Camlyn, and Birthday Boy!


Saturday, February 4, 2006 3:13 AM CST


It was a special Friday to finish off a memorable week. First and foremost, Marin completed her five days of the clinical trial chemotherapy, and so far she's in good shape. After the bit of dizziness we mentioned Wednesday, she felt fine through Thursday and Friday. The treatments were only mildly uncomfortable as the technicians had a hard time finding strong veins for the IV's by the end of the week, otherwise it was a matter of the monotony of three hours sitting in a small cubicle watching a clear liquid drip into her arm (and watching daytime TV... 'Ellen' was pretty funny today, and predicted the Seahawks would win the Superbowl).

There was a great sense of conclusion at the end of Marin's session. We won't have to go back in for treatment for another three weeks, although she will need to have blood levels checked twice a week during this period. We were able to look forward to the weekend and a little relaxation. Marin did work with her speech therapist for a few hours, then the bell rang and she was done for the weekend. She had been invited to see a high school drama club sketch show and was really looking forward to a night out. Her new friends Molly and Katrina have reached out to include Marin, and this emotional support means so much. Marin had a good reason to get dressed in some cool clothes and we made a night of it. Not only was the show put on by the Bellevue High drama club an absolute riot, but Marin met a few of the participants, AND three of the coolest guys in the show wore 'Super Marin' T-shirts from the Wave of Courage Foundation!! It was very touching that they did this for her. Molly had ordered the shirts and asked her friends in the show to wear them. It was a wonderful gesture and had a surprisingly deep emotional affect. Thanks.

On the home front, our terrific neighbors continued their wonderful outreach by bringing yet another terrific meal to our door and by banding together to turn the weekly TGIF afternoon coffee play date in to a birthday celebration for Mikey, who turns four this Sunday... SUPERMIKE SUNDAY! The one downturn to the entire event is that Mike cut himself shaving before going to the party. Indeed, just like I remember doing when I was about three, the 'Little Man' sliced his lip pretty good with my triple-blade Gillette. Lots of blood, a few tears, but he shook it off pretty quick and was ready to party in no time. What a way to start the weekend!

Make it a great one,

Marin, Nancy, Matt, Camie & Birthday boy


Saturday, February 4, 2006 1:42 AM CST


It was a special Friday to finish off a memorable week. First and foremost, Marin completed her five days of the clinical trial chemotherapy, and so far she's in good shape. After the bit of dizziness we mentioned Wednesday, she felt fine through Thursday and Friday. The treatments were only mildly uncomfortable as the technicians had a hard time finding strong veins for the IV's by the end of the week, otherwise it was a matter of the monotony of three hours sitting in a small cubicle watching a clear liquid drip into her arm (and watching daytime TV... 'Ellen' was pretty funny today, and predicted the Seahawks would win the Superbowl).

There was a great sense of conclusion at the end of Marin's session. We won't have to go back in for treatment for another three weeks, although she will need to have blood levels checked twice a week during this period. We were able to look forward to the weekend and a little relaxation. Marin did work with her speech therapist for a few hours, then the bell rang and she was done for the weekend. She had been invited to see a high school drama club sketch show and was really looking forward to a night out. Her new friends Molly and Katrina have reached out to include Marin, and this emotional support means so much. Marin had a good reason to get dressed in some cool clothes and we made a night of it. Not only was the show put on by the Bellevue High drama club an absolute riot, but Marin met a few of the participants, AND three of the coolest guys in the show wore 'Super Marin' T-shirts from the Wave of Courage Foundation!! It was very touching that they did this for her. Molly had ordered the shirts and asked her friends in the show to wear them. It was a wonderful gesture and had a surprisingly deep emotional affect. Thanks.

On the home front, our terrific neighbors continued their wonderful outreach by bringing yet another terrific meal to our door and by banding together to turn the weekly TGIF afternoon coffee play date in to a birthday celebration for Mikey, who turns five this sunday... SUPERMIKE SUNDAY! The one downturn to the entire event is that Mike cut himself shaving before going to the party. Indeed, just like I remember doing when I was about three, the 'Little Man' sliced his lip pretty good with my triple-blade Gillette. Lots of blood, a few tears, but he shook it off pretty quick and was ready to party in no time. What a way to start the weekend!

Make it a great one,

Marin, Nancy, Matt, Camie & Birthday boy


Friday, February 3, 2006 1:36 AM CST


We got a little ahead of ourselves in our report last night. As I wrote about Marin feeling good early in the evening, she was actually starting to feel kind of lousy. She told us later she had been feeling dizzy with nausea, but she held it together and never got sick to her stomach. Tough kid. We were concerned about this Thursday, but she felt better in the morning and her fourth chemo session went well. Marin felt no ill affects throughout the day and enjoyed a bit of relaxation.

Aunt Barb gifted Marin a session with an "Intuitive" named Laura Alden Kamm. She might best be described as a medical psychic, and she was very impressive and very helpful. She gave us unique insight on Marin's tumor, how to fight it medically, emotionally, nutritionally and spiritually. All of this was done over the telephone with Laura completely in-tune with Marin and our family. In retrospect, it was amazing the insight that she had, but during the consultation she was simply helpful and convincing. Thank you Aunt Barb.

We had a wonderful evening enjoying the photos sent to us by Peg Alton. She took lots of pictures at the Gwinnett County Swim meet, then took the time to type humorous notes for each one. Marin really enjoyed the pictures of all her good swim buddies and was so happy to see so many of them doing so well at the big meet. She was very touched to see so many good friends and just acquaintances were honoring her with the MM on their shoulders, and the WAVE OF COURAGE presence at the meet (thank you Matt), and we are all humbled by the group prayers and kind words shared by her friends on Marin's behalf. Good luck to everyone in the state meet!

Always rooting for one & all,

Marin, Nancy, Matt, Camie & Mike


Wednesday, February 1, 2006 10:58 PM CST


Over the hump today in Marin's chemo treatments and through three days of this clinical trial she's feeling pretty good. She was more fatigued today than she was in the first two days, taking a snooze during her treatment today and then needing another nap later in the day, but overall she's felt good. No nauseau and her appetite has remained hardy so we feel it's going well. Now we have to hope & pray that the trial is having an affect on the cancer.

We continue to be sustained by friends and neighbors helping us when we really need it. We can't express enough how much we appreciate all the kindness from so many quarters, including of course the notes of inspiration we read to Marin every night from the guest book here on the web site. Our faith remains strong, and we truly feel the power of prayer at work. Two more days of chemo this week, and we're keeping a focus on getting better.

Always believing,

Marin, Nancy, matt, Camie & Spidey


Wednesday, February 1, 2006 0:31 AM CST


Now through two days of Marin's chemotherapy trial and so far, so good. After a long day Monday, Tuesday was a quicker session, about 2-half hours. After arriving around 10am, she took an IV drip with medication to counteract nauseau, but the drip itself seems to make Marin dizzy. They'll try an oral form of that beginning Wednesday. After the first IV, Marin gets another 40-minute drip of the experimental agent that's hopefully helping the Temazolimide (chemo) attack the cancer cells in her brain. So after a half day in the hospital, Marin came home to work on therapy sessions with her PT and with Ashley her teacher. She's still going strong with a healthy diet and supplements and so far there hasn't been any illness or side affects.

On the home front, we have to say thank you again to our terrific neighbors who've banded together to help us get through this. Friends bringing dinner and helping us with rides, pick-ups, and even organizing our garage has been such a blessing. We are so grateful to everyone.

Getting by w/ a little help from our friends,

Marin, Nancy, Matt, Camie & Mikey


Tuesday, January 31, 2006 1:30 AM CST


True to form, Marin was a champ during her first day of this new round of chemotherapy. This outpatient clinical trial requires her to take one compenent intravenously so she'll be going in to the hospital every day for five straight days. Getting started Monday required a long day at Children's Hospital where she was poked, prodded, and generally bothered by a host of nurses and doctors for hours on end. After bloodwork, various tests, and eventually the more than two hours of chemo, Marin was still in a positive frame of mind, despite the fact that she felt dizzy for most of the day. We'll be up and back at attacking this tumor early Tuesday.

As the cards and packages from well wishers continue to arrive, we all got a big laugh from a gift sent by Nancy's cousin Karen. A blue bathing cap with rubber flowers protruding all over it arrived for Marin; boy did she get a kick out of it... especially when Dad put it on. A good laugh is a great way to call it a Monday.

Giggling all the way to bed,

Marin, Nancy, Matt, Camlyn & Michael


Monday, January 30, 2006


We spent Sunday evening taking in an entertaining and inspirational performance at a local church where a singer'songwriter named David Harsh blew away a full house with his talent and christian message. Marin enjoyed this very much as she enjoys anytime she can get out of the house and this type of music really speaks to her. It was a nice way to finish off the weekend before a big week ahead.

On Monday, Marin reports to Children's Hospital here in Seattle to begin a five day intravenious treatment of chemotherapy. It's a clinical study pairing Temador, the chemo she's been on before, with and inhibitor tagged 06BG, which researchers hope will help the temador be absorbed by the cancer cells, thus killing them. With a lot of input, we're satisfied this is a worthwhile step with other options to consider in the event this doesn't hsow the desired results. Please pray for Marin this week as the treatments are not without discomfort and side affects. She's being treated as an outpatient, so she's going in every day for a chemo IV for the next five days. Thanks as always for your wonderful support.

We kill tumors,

Marin, Nancy, Matt, Cami & Spidey


Sunday, January 29, 2006 0:23 AM CST


What a thrill for Marin to know that her teammates at Collins Hill rallied for such a strong showing in the county championship meet. Congratulations Eagles!! By keeping Marin in your hearts and prayers, you've helped her feel that she remains a part of the team, and that is so special for her right now. She constantly wears her Eagles letter jacket and is so proud when people admire it and ask her about it.

Ironically, after mentioning Lance Armstrong in yesterday's journal entry, we were inspired by Lance in a way we weren't expecting. We've read his book on surviving and thriving beyond cancer and we highly recommend it. Saturday afternoon, we went as a family to see the IMAX movie "Wired For Success" which is an amazing look at the inner workings of the human brain within the context of athletic stress; in this setting, the Tour de France. While the film had very little to do with Lance specifically, it did focus on how the human brain is structured to overcome enormous obstacles and is capable of generating the right wiring to accomplish goals, heal the body, and succeed. The message was a very powerful and terrifically reinforcing for everything Marin is going through right now. Our family time was very well spent.

Enjoy every minute,

Marin, Nancy, Matt, Cami & Spidey


Sunday, January 29, 2006 0:03 AM CST


Ironically, after mentioning Lance Armstrong in yesterday's journal entry, we were inspired by Lance in a way we weren't expecting. We've read his book on surviving and thriving beyond cancer and we highly recommend it. This afternoon, we went as a family to see the IMAX movie "Wired For Success" which is an amazing look at the inner workings of the human brain within the context of athletic stress; in this setting, the Tour de France. While the film had very little to do with Lance specifically, it did focus on how the human brain is structured to overcome enormous obstacles and is capable of generating the right wiring to accomplish goals, heal the body, and succeed. The message was a very powerful and terrifically reinforcing for everything Marin is going through right now. Our family time was very well spent.

Enjoy every minute,

Marin, Nancy, Matt, Cami & Spidey


Friday, January 27, 2006 1:03 AM CST


The past 10 days have been an avalanche of phone calls and e-mails all with the purpose of finding the best treatment for Marin at this time. Our research and advice has led us to some amazing people and we want to thank everyone who's offered insight for us to consider. We've taken loads of information under advisement and have come to the decision that there are many options we will be utilizing in the pursuit of Marin's health. We have introduced a holistic approach to her diet and are using supplements to boost her body's mechanisms to fight off the cancer. Strong faith and mental strength techniques are an important factor. And at the same time, we feel we've received the very best medical opinions from across the counry, as well as excellent insight from the experienced patients and family members who've been through this, and we've concluded we'll pursue several a courses of treatment that includes a chemotherapy clinical study here in Seattle with other combinations of affective drugs in line. Not all of this is recommended by the medical establishment, but just as Lance Armstrong and many others learned in their struggle, it's sometimes in a patient's best interest to go well beyond the established norm. We feel we're there with Marin right now. We also feel the prayers and support of so many of you who keep up through this web site, and we appreciate every one of you.

Breaking through the clouds,

Marin, Nancy, Matt, Cami & Spidey


Wednesday, January 25, 2006 11:13 PM CST


We woke up to sunshine Wednesday, a rare commodity this winter here in the northwest. So it lasted only half a day... we'll definitely take it! The rest of the sunshine was provided by our great neighbors who made our day with a gang-assault on our box-stuffed garage and cleared out a big portion for us. It was an amazing gesture of kindness, among many that we've been blessed with lately. While we've been relentlessly on the phone with doctors, hospitals, specialists, healers and helpers all across the country, our friends here have been a big help by bringing us meals and assisting with Cami & Mike.

Marin continues to shine through her spirit and attitude and she's been supported by so many of her good friends recently who've sent cards and gifts in the mail. She received some special pictures from Abigail, a t-shirt and beautiful note from Kathleen Hersey from the US Jr. National team meet in Australia (Marin was so touched), some SwimAtlanta gear from coach Chris (sweatshirts for the whole family!) and even a fruitcake (yum)! Thanks to all.

Right now we're still researching and arranging for treatment for Marin. We should have this decided in the next day or two. It appears we may be taking her to St. Jude's in Memphis for a clinical study that would require a week or so in Memphis, then treatment here in Seattle, with occasional travel back to Tennessee. We'll let you know how the decision goes.

Looking ahead to sunny days,

Marin, Nancy, Matt, Camlyn & Michael


Wednesday, January 25, 2006 1:13 AM CST


Up bright & early, Marin underwent an MRI Tuesday morning with the results essentially confirming what we suspected. The positive spin is that there hasn't been any dramatic growth in two weeks, although some edema, or swelling, was noted. Our next move hasn't been confirmed but we learned of a new chemotherapy study that could be the right fit. This one is out of St. Jude's in Memphis and we'll have a better idea if this is right after her records are reviewed by the doctors there. At the same time we continue to consider any and all alternatives, but the avalanche of information and opinion is hard to sort through.

In the meantime, Marin is adhereing to her special diet and keeping a good attitude. The rest of us are simply trying to deal with the overwhelming stress and trying to keep it together. Kind of a tough day, but we expect better tomorrow.

Resting up between rounds,

Marin, Nancy, Matt, Camlyn & Spidey


Tuesday, January 24, 2006 0:35 AM CST

Tonight I can see the stars out in Seattle!! There are thousands. Perhaps each star represents all the prayers that have been sent up for Marin.

Marin was her strong, happy, hard-working self today. She enjoyed sleeping in a little this morning and had speech today. After that she went swimming. The school then sent over a computer with a program that should help her with her disabilities she has now (all are which temporary according to Marin!).

Her diet continues to be very restricted in hope of helping Marin's miracle. We are still entertaining all suggestions and information as to what to do. We will fight as long as it takes!! We will fight hard and strong and not crumble!! Tomorrow at 7:00a.m. Marin has a MRI to get ready for a clinical trial option that we are considering. Perhaps those prayers have turned this tumor around!!

The support from the swimming world is truely amazing!! Also, our new friends and neighbors are easing so much of the pain for Matt and I helping with all the "real life" activities. Cami is finally going to be able to get involved in things with all their help. Thank you, thank you, thank you. Marin has felt all the love from the pools!! A huge group hug!!

Happy star dreams,

Marin
Nancy, Matt, Cami, and Michael


Monday, January 23, 2006 1:29 AM CST


Sunday was a rare day for Marin to be a typical kid. No doctors, no rehab, no appointments to keep. After church, it was simply, "what would you like to do today?" and what a shock! - Marin wanted to go to the movies! So that's what she did, with Mom & Mike. They went to say "Hoodwinked" an animated twist on the Little Red Riding Hood tale, and all enjoyed it, including Michael. Afterward, they went shopping for clothes and Marin came away feeling really good about herself. Her confidence about going out in public is growing and she's handling herself very well, usually wanting to make her way around without the use of her cane. After a day out, the ladies stopped by a neighbors house for a football party and delicious snacks and enjoyed the company as the Seahawks pounded the Panthers to earn a trip to the Superbowl... pretty cool. All in all, a good way to finish out the weekend with lots of work ahead beginning Monday.

Here's a special encore presentation of the poem Cami wrote this weekend. Enjoy each & every day.

YEARS - By Camlyn Morrison


Years of school,
Riding the bus back and forth

Years of shopping,
spending money no matter what it's worth

Years of laughing,
Smiling at every joke

And years of singing,
From rock, to county, to pop, to folk

Years of growing,
It seems like we grow an inch every night

Years of learning,
From school, to right, to wrong, to getting out of a fight

Years of falling,
Learning how to get through the crowd

And years of listening,
From the soft to the loud

There is years of healing,
Curing cancers, colds, and sores

For a brighter future,
Year by year
Gaining a little more

By Camie

May God be watching over each one of us.
Happy day to everyone.

Marin
Camie, Nancy, Matt, and Michael


Sunday, January 22, 2006 0:49 AM CST

We had a very lazy Saturday. After spending the few days before constantly on the phone with physicians, healers, and offices, it was nice to just hang out and not talk on the phone. We have received a lot of information, thanks to everyone, and we are still wanting as much as possible!! Personal experiences really hit home since we can speak with people first hand what they have gone through and done in a situation like this.

Marin continues to be awe inspiring. We had an acupuncture come to the house this morning and she spent a few hours with Marin. Initially, she asked Marin a bunch of questions. One thing she asked Marin was how she was feeling about all this that is going on. Marin's first response was "I'm happy." What an incredibly awesome kid!! I had to leave the room as my eyes filled with tears when she said this. That's our Marin. How could anyone be more positive than that! Anyway, the rest of the session went great and I believe Marin enjoyed the acupuncture. She fell asleep afterwards and woke up full of energy.

Something Marin loves to do is look at pictures and put them into albums. If anyone has any photos they feel would be uplifting to Marin, she would greatly appreciate anyone sending them. Marin's sister, Camie, gave her a bunch of stuff for scrapbooking for christmas as Camie has recognized how happy these photos make Marin.

Speaking of Camie, she wrote a poem today, which I thought I would share with everyone. Camie loves to write poetry and uses it as a release from her fears and anxiety.

YEARS - By Camlyn Morrison

Years of school,
Riding the bus back and forth

Years of shopping,
spending money no matter what it's worth

Years of laughing,
Smiling at every joke

And years of singing,
From rock, to county, to pop, to folk

Years of growing,
It seems like we grow an inch every night

Years of learning,
From school, to right, to wrong, to getting out of a fight

Years of falling,
Learning how to get through the crowd

And years of listening,
From the soft to the loud

There is years of healing,
Curing cancers, colds, and sores

For a brighter future,
Year by year
Gaining a little more

By Camie

May God be watching over each one of us.
Happy day to everyone.

Marin
Camie, Nancy, Matt, and Michael


Saturday, January 21, 2006 1:46 AM CST


WOW! The entries in Marin's guestbook here Friday night are absolutely awesome! To know that so many friends and competitors in the Gwinnett County high schools banded together in prayer, communion and competition in honor of Marin really makes us feel wonderful. We hope everyone had a great time at the respective meets (way to go Eagles!)and we miss all of you so much.

Here in the northwest we're feeling more connected as some of our good neighbors have reached out to help just as our time of need has become critical. A few of the women in the neighborhood only recently became aware of Marin's struggle and have banded together to help us in several ways that good neighbors do. We are so thankful for the good people in our lives and feel this is one way God answers prayers.

Our search for the next course of treatment became a little more focused as we spoke with doctors from several hospitals over the last 24 hours. The preliminary opinions from UCSF and Duke both concur with our oncologist here in Seattle. We've been told that there are a few possibilites to consider in terms of clinical studies for chemotherapy and that the one recommended here is a good starting point. I suppose it's good to know that the treatment recommended here is one that's endorsed by other excellent facilities. There are still a few items we are researching and we won't know for sure what we're doing until early next week. All of the suggestions sent here through the guestbook have been greatly appreciated and helpful to us in making our decision.

In the meantime, Marin remains in good spirits as she works hard on her rehab and consuming mass quantities of health food, supplements, and drugs. The kid is one tough cookie. She was excited to speak with her good friend Stephanie and her Swim Atlanta bud Ali on the phone today. Fluent conversation is still a struggle but it makes Marin so happy to hear her friends on the phone. Here's hoping everyone has a great weekend.

Thankful for good friends and another day to enjoy them,

Marin, Nancy, Matt, Camlyn & Spidey


Friday, January 20, 2006 0:22 AM CST


As we continue to narrow the scope of Marin's treatment options, her life continues along a normal course. First thing today, Marin hit the pool (along with Dad & Mikey) and went right to work. We've become friends with several of the people who work at the club, and they have become fans of Marin. One special lifeguard swam with Marin today and was so impressed with the improvment in her strokes. She's getting some kick out of that right leg, and enough movement to have a recognizable breaststroke kick. Nevertheless, even as she feels her limitations, Marin is simply at home in the water.

Our consultation with her oncologist and radio-therapy doctor on Wednesday resulted in some options we are comfortable in considering. First, we're waiting on some input from a few other doctors after we sent her records to UCSF and to Duke for second opinions. We're looking at a number of clinical studies for chemotherapy treatments and so far it appears that we'll at the very least have access to clinical trials here in Seattle that are similar to others around country that match what's being studied in a case like Marin's. Holistic nutrition, supplements, and other control factors are in either in affect or being considered. Thanks for all the suggestions and we're listening to all input.

Emotionally we're holding up, although the mental energy expended on all of this is absolutely exhausting. The phone is in constant use, so if you're trying to reach us, please be patient and leave a message. Friends and nieghbors have been stepping up to help while your love and prayers are felt and always appreciated.

Have a good weeekend and we will too,

Marin, Nancy, Matt, Cami & Spidey


Wednesday, January 18, 2006 2:09 AM CST


Looking sweeter by the day, Marin's peach-fuzz 'do made me smile tonight as I put her to bed. Trying to love her every waking minute is the goal, and so far it's been very easy to do. Marin's adjustments to an array of nutrtition intake changes hasn't been easy, but she's handling it without too much complaint. Carrot juice, anyone? YUM!

We're consulting with our oncologist Wednesday and the gamma knife doctor to see if that might be a reasonable course of treatment. We'll be comparing what they say to others who operate proton therapy centers, a different from of radiation treatment that may suit Marin better. We'll need to make a decision quickly as this is a time sensitive case.

It's been suggested that we mention here the diagnosis of Marin's tumor. She has what is called an 'anaplastic ganglioglioma' and so far it's behaved more aggressively than doctors expect. We appreciate all the suggestions we've been receiving about clinical studies and we've come across a few that appear might fit her case. We'll see. In the meantime, it's livin', lovin', and lots of prayers.

When the hill gets steeper, you climb a little harder,

Marin, Nancy, Matt, Camlyn & Spidey


Tuesday, January 17, 2006 1:56 AM CST


As always, an amazing outpouring of support has lifted our spirits by reminding us how many terrific friends, family members, and good-hearted people we've never met are out there pulling for Marin. We've had an abundance of good suggestions and we're re-energized in our pursuit of the best care and effective treatments. Right now we're discussing medical options that include further radiation or proton therapy and chemotherapy possibilities that include clinical studies. We really appreciate all the research so many of you have done on Marin's behalf. We're having her records sent to UCSF for further opinions and we may do so at other facilites.

At the same time, we're making a serious run at the nutrition and holistic remedies that we believe can have a positive affect. Marin has always been a healthy eater in general, but we're learning more about the types of foods and supplements that can give her the optimal chemical balances to fight her disease. A new friend Jessica has been very helpful in counseling us on nutrition and the necessary mental approach to beating cancer. Marin is upbeat and up for the challenge. She went swimming today, smiled a lot, did rehab and school work, then watched
"The Bachelor".

Sweet dreams,

Marin, Nancy, Matt, Camlyn & Miguel


Monday, January 16, 2006 2:45 AM CST

It is once again in the middle of the night and I am still awake. I have been hanging on every message that all of you have been writing and surfing the internet globe for helping cure Marin. I can't tell each and everyone of you for your support, suggestions, and sharing close, personal information with us so we can continue in our fight.

Marin had a lovely day today going to the movies with Molly and Katrina from the BCST. Reaching out to Marin is so great right now due to her extreme limitations she is experiencing. I'm sorry for being so brief. I am working on getting my strength back to fight again after our devistating news on Friday. Please keep information coming for an alternative cure, and pray with me for the miracle. I must have hugged and kissed marin 500 times today. Michael and Camie got an excessive amount of hugs and kisses also. No one seemed to complain too much!

Much love to all,

Marin the warrior

Nancy, Matt, Camie, and Michael too!


Sunday, January 15, 2006 1:28 AM CST

Your thoughts and hard prayers has got us through yet another day. We spent each moment appreciating Marin and all the wonderful gifts she has given us. Her strength, courage, undying optimism, determination, and smile are almost unbelieveable (from anyone except Marin). She actually had a great day today. She hardly ever used her cane today. She spoke on the phone with several people. I took her swimming and she looked great in the pool! It just doesn't make sense what the MRI showed us. The tumor did look like it had all grown back, yet she continues to make wonderful progress.

The docs said no more. No more treatments of conventional type. They haven't worked. We are 100% relying on the faith of a miracle for Marin. I know miracles happen. I know Marin is a gift from God and I should be happy for everyday I have had with her. Today was truely a happy day with marin.

After we swam, our friends the Sheas invited us over for dinner. It was wonderful! We drank some wine, ate some great food, had some wonderful laughs, and left with a bag of goodies. I still am open to any and all suggestions as to what out there could possibly help in Marin's healing.

Thanks for the unbelieveable support for her. It is truely bringing on that smile and fighting spirit from this little lady we all love so much.

Swimming and staying strong,

Marin, mom, Matt, Camie, and Michael (Grandma Shirley had to go back home today. We really appreciated all her laughter and support!)


Saturday, January 14, 2006 0:23 AM CST

Why is it Friday the 13th? I have tried to write 4 times on our site and cannot find the words. (Can you believe it, those of you who know me, nancy, can find this hard to believe).

Today is by far the roughest day of our lives. All I can express right now is please pray for strength for our whole family. Marin is and always will be my hero.

Sweet dreams,

Marin, Nancy, Matt, Camie, and spidey




Friday, January 13, 2006 0:09 AM CST

Dear Family and Friends:

It saddens me greatly as I type this journal. I don't understand the meaning of all this. Matt and I were informed yesterday that Marin's tumor is showing "activity." It's taken awhile to stomach this so we waited until today to post it. Dr. Geyer, Marin's oncologist has set up an appointment with us on Friday morning, tomorrow, to give us the rundown and options. There are basically three from the conventional type of medicine. Firstly, more surgery. Secondly, gama knife radiation, which could be extremely harmful after just going through a whole round of radiation, and highly boosted up chemo.

I pray that God answers my prayers to find something out there that will kill this cancer. It's mean and vicious, yet there has to be something out there that can do the trick.

On a positive note, Marin continues to be happy and positive. (We haven't told her what the news is. We are going to tomorrow.) It doesn't make sense with all the tremendous improvements she has been making these past several weeks that this could be true. I have been feeling like the old Marin is back with her smile, jokes, and strength. The silent fighter roars on, and if anyone in this world can beat it, it's her. PLEASE PRAY FOR THAT MIRACLE FOR MARIN!!

We went swimming this morning and Marin did great. Flip turns and everything!! Truely amazing.

Also, if anyone has heard of anything out there, anywhere in the world that will help Marin fight this battle, I am opened to any and all suggestions.

Hoping and praying,
Nancy, Marin, and family


Thursday, January 12, 2006 2:46 AM CST


It's been said that the true measure of someone's character is how that person reacts, behaves or responds in times of crisis. To see Marin get up every morning and meet her challenges head-on, without complaint or self pity is a daily confirmation of character. She goes about her rehab schedule with enthusiasm despite feeling sick and hera low threshhold for physical and mental fatigue. Emotionally she is stronger than anyone should be, and for all these reasons she has made us so wonderfully proud. Marin is still fighting hard and she continues to need all the prayers she can get. We'll be discussing the results of her PET scan with her oncologist on Friday and begin determining a further course of treatment.

We were saddened deeply Wednesday with the news that Eric Namesnik passed away in Michigan. A US Olympic swimmer, silver medalist in Atlanta, coach, husband and father, Eric was a good friend to many of the people who supported Marin through this web page. Our sympathy goes out to Eric's family and friends; the swimming community lost a great asset, but Snik will always be an inspiration.

http://www.carepages.com/ServeCarePage?cpn=SNIK

Living to the fullest,

Marin, Nancy, Matt, Camie, Michael and Gramma Shirley


Tuesday, January 10, 2006 11:56 PM CST


In a classic case of what a difference a day makes, Tuesday was a much better day for Marin. On the heels of a difficult (dizzy!) Monday, Marin felt much better today and made the most of it. She went swimming and was working it very well. Watching her strokes from under the water, it's clear that her right leg is responding better each time out. Her one-legged swimming is now about a 1.3 legged swimming... she even now has enough to execute a little bit of a breast-stroke kick. Believe me, this is impressive. She's walking more and more around the house without her cane, which is NOT sanctioned by her parents, but she's very determined. To top it off, her appetite was huge today, enjoying a variety of Gramma Shirley's home-cookin', highlited by her famous stuffed cabbage.

Still no word on Marin's PET scan as of lights-out Tuesday but we do expect the results Wendesday. We'll keep you posted.

Making every day count!

Marin, Nancy, Matt, Peach, Spidey & Gramma Shirley


Tuesday, January 10, 2006 2:09 AM CST


Hi everybody,

It was a rough Monday for Marin as she felt dizzy for most of the day. That didn't stop her from working hard in her physical rehab and with her homebound teacher, however, as she continues to carry a strong fighting spirit. We didn't recieve the results of her PET scan yet, and we may not for another day or two, but we'll post it here as soon as we do. Keep praying for good results! The dizziness is a bit worrisome, but since we just had an MRI last Thursday we're failry certain there's no immediate trouble, although Mairn might have a different perspective, being the one that is feeling so sick. Nevertheless she's confident she'll feel better after a good night's sleep and she's looking forward to going for a swimm Tuesday morning. We hope you all have a great day and make the very best of it.

Undeterred on a rainy-day Monday,

Marin, Nancy, Matt, Camie, Spidey & Gramma Shirley


Monday, January 9, 2006 2:53 AM CST


In many ways, this weekend was just like old times for Marin; dominated by swimming. It started Friday when she watched a DVD made by the father of one of her teammates on the 2004 Southern Zone team. Marin was really inspired watching her friends and herself competing and having fun in Fort Lauderdale on their way to winning the 13-14 year old girls team title. To us, seeing Marin enjoy this home video so much was really significant because her enthusiasm is now overriding the basic disappointment over the condition.

Both Saturday and Sunday Marin wanted to go watch the action at the senior circuit meet at the Weyerhauser Aquatics Center (where there will be a national meet later this year). Marin enjoyed watching the swimmers and the scoreboard, and with a wry smile it was clear she was thinking that, at her best, she was certainly among the best swimmers in the building. Although we didn't meet very many people it was nice being among swimmers and swim families again.

Sunday afternoon, Marin applied her inspiration when she swam with her disabled team and had a great workout. Her coaches and several parents commented on how much she's improved since they first met her six weeks ago, from her swimming to her mobility to the fact that she simply seems a lot. It was important for Marin to hear this and it had a very positive impact on her.

Marin was also happy to hear that the Wave of Courage effort went over so well this weekend in Georgia. She's still doesn't quite conceive of herself as an inspiring figure, but she is proud that something so positive is coming out of her struggle. We love the T-shirts and bracelets, and we appreciate everyone who's had a hand in helping the Wave of Courage foundation get off the ground.

Make it a good week,

Marin, Nancy, Matt, Camie, Mikey & Gramma Shirley


Monday, January 9, 2006 2:53 AM CST


In many ways, this weekend was just like olf times for Marin; dominated by swimming. It started Friday when she watched a DVD made by the father of one of her teammates on the 2004 Southern Zone team. Marin was really inspired watching her friends and herself competing and having fun in Fort Lauderdale on their way to winning the 13-14 year old girls team title. To us, seeing Marin enjoy this home video so much was really significant because her enthusiasm is now overriding the basic disappointment over the condition.

Both Saturday and Sunday Marin wanted to go watch the action at the senior circuit meet at the Weyerhauser Aquatics Center (where there will be a national meet later this year). Marin enjoyed watching the swimmers and the scoreboard, and with a wry smile it was clear she was thinking that, at her best, she was certainly among the best swimmers in the building. Although we didn't meet very many people it was nice being among swimmers and swim families again.

Sunday afternoon, Marin applied her inspiration when she swam with her disabled team and had a great workout. Her coaches and several parents commented on how much she's improved since they first met her six weeks ago, from her swimming to her mobility to the fact that she simply seems a lot. It was important for Marin to hear this and it had a very positive impact on her.

Marin was also happy to hear that the Wave of Courage effort went over so well this weekend in Georgia. She's still doesn't quite conceive of herself as an inspiring figure, but she is proud that something so positive is coming out of her struggle. We love the T-shirts and bracelets, and we appreciate everyone who's had a hand in helping the Wave of Courage foundation get off the ground.

Make it a good week,

Marin, Nancy, Matt, Camie, Mikey & Gramma Shirley


Saturday, January 7, 2006 1:30 AM CST


Greetings from a little warmer but no less wet Northwest. Friday Marin spent a half day in the hospital undergoing a PET scan procedure to determine cell activity in her brain. While long and tedious, the procedure wasn't uncomfortable, save for an injection. The results of the tests won't be available to us until Monday, but we have faith that this will alleviate some worries.

Showing her spirit, Marin spent the evening in the pool. She got in a good workout and once again pounded Dad in a one-armed 50-free. She's looking forward to swimming with her para-athlete team on Sunday, and will be thinking of her many friends at several swim meets this weekend. We wish to thank everyone who has worked so hard to get the Wave of Courage foundation off the ground and wish you all the best in your efforts this weekend.

Wet by choice,

Marin, Nancy, Matt, Camie, Spidey & Gramma Shirley


Friday, January 6, 2006 0:35 AM CST


Hi everyone,

On balance it was a good day as Marin's MRI and appointment with her oncologist yielded at least no bad news. Looking at her film was very interesting but mostly inconclusive as to the condition of her tumor. The comparison since her last MRI in November showed that the tissue in and around the surgical area is retaining fluid, yet not enough to cause any swelling. There doesn't appear to be growth beyond what we saw at the end of her last surgery. Since we've weaned her off the steroids a few weeks ago, this fluid presence is not surprising according to her oncologist, who also stated that this could simply be residual from radiation therapy. Confused yet?! So were we. The upside here is that Marin's oncologist feels that if there was unhealthy growth among what we saw today, it's likely she would be showing negative symptoms. But the fact is Marin has shown better mental function and physical strength over the past month, so Dr. Geyer felt positive about this and believes this is the best indicator to go on right now. We'll be keeping a close watch on things beginning with a PET scan Friday. We'll have another MRI in about a month, and in the meantime, we'll charge forward with positive thoughts and prayers. Thanks as always for your kind notes and concern.

Getting better everyday,

Marin, Nancy, Matt, Camlyn, Mikey, & Gramma Shirley.


Thursday, January 5, 2006 0:02 AM CST


Hi everybody,

A roller coaster of a week rolled over Wednesday with another big hill ahead. Marin needs your prayers as she goes in for an MRI to assess the condition of her tumor. She's been feeling ill recently and this has her a bit frightened. We believe she is getting better, however, and we see it every day as her physical strength and mental agility are most certainly improving.

Today Marin was both up and down as she felt dizzy this morning but still worked very well through her physical therapy. Afterward we went to the swimming pool hoping she might feel a little better and want to swim. Marin gutted out a few laps, but couldn't continue. She felt better after coming home and resting; her school work today consisted of listening while her teacher read her a book ("Holes"), and her appetite has been excellent. We have great faith that she will beat her cancer but some extra prayer power in down times like this certainly can't hurt. We'll let you know what we find out here tomorrow. Until then, keep good thoughts.

Riding at the speed of life,

Marin, Nancy, Matt, Camie, Spidey & Gramma Shirley


Wednesday, January 4, 2006 1:44 AM CST


Hello everyone, we hope you all had a good Tuesday. Marin started strong, but wilted a little down the stretch. After speech therapy and a session with her school teacher, Marin took a nap with the plan of going swimming when she woke up later in the afternoon. Unfortunately she felt woozy when she got up and didn't feel she could make the swimming session. Sadly, she told us she had a slight seizure and we could see how much this frightened her. She's used to these mild, almost unnoticable seizures as she's had them since she was a little girl, but today was the first time since her latest surgery that she experienced one. Nancy comforted her be reminding her that there's no question she's been improving in all her mental capacities and Marin had to agree. We believe Marin is healing and her positive outlook is a big part of that. Prayer support is important too, and we appreciate all of yours. Please remember a young friend of Marin's from the Ronald McDonald House in your prayers as well. Catie is a bright, brautiful three year old who's undergoing more brain surgery herself next week.

Staying strong among friends,

Marin, Nancy, Matt, Camie, Mike, & Gramma Shirley


Tuesday, January 3, 2006 0:37 AM CST


Hi everyone,

The first Monday of the new year is a lot easier to take when it comes on the end of a three day holiday weekend. Marin enjoyed a visit from some new friends as the Kukors ladies of King Aquatics stopped by for a lunchtime visit. What a delight to meet such a wonderful family who've made such a great effort to welcome us to the Northwest. The "Jello Lady" has been among the most ardent supporters of Marin through this web site and after meeting Jaapje, Ariana, and Mattie, we're reminded how fortunate we are to have so many good people in our corner. Marin enjoyed the visit very much although she's still somewhat self conscious of her appearance and ability to carry on a conversation. We are very proud that's she's able to deal with her reality and still appreciate meeting new friends... this is a very special form of bravery that most people never consider... but Marin is handling it with a lot of poise.

As always, the notes of encouragement in the guestbook here keep on inspiring Marin and our entire family. Thanks for all the wonderful support.

The new motto for the New Year: "Fix Marin in 2006" ~ Nancy (tm)

Marin, Nancy, Matt, Cami, Spidey, & Gramma Shirley


Monday, January 2, 2006 1:35 AM CST


Feliz Cumpleanos,

A brand new year is a perfect starting point to take stock in our blessings and focus on the road ahead. For our family and dear Marin, we're gonna burn rubber on 2005 and move forward to recovery. There's no question she's been improving recently, most notably in her general cognitive strength and overall disposition. Marin's emotions have been more positive in recent weeks with lots of laughter and the return of her smile that we saw too little of over the past several months. This evening after she brushed her teeth and was getting ready for bed, she caught Dad checking out her rather unique hair line, with half a head of full, beautiful, flowing locks; a third of her scalp sprouting quickly growing dark peach fuzz, and the remaining horseshoe shaped portion still smooth from the intense field of radiation. We locked eyes for a moment, then both just cracked a big smile as acceptance and regrowth intersected with one funny looking haircut... no worries, Marin looks great in hats!

We hope everyone takes the opportunity as we start the new year to look ahead with optimism and resolve. As always, thanks for keeping Marin in your prayers.

Ringing in a better year,

Marin, Nancy, Matt, Camie, Spidey, & Gramma Shirley


Saturday, December 31, 2005 5:18 PM CST

Happy New Year everybody,

The celebrations continue and Marin's smile shines through the holidays. Friday was Nancy's birthday and after saying goodbye to the Cavarnos in the morning, the whole family went with Marin for a good workout at the pool. After a nice big meal at a Mexican restaurant, Nancy's brithday desire for a little peace and quiet was granted in the form of a much-needed nap. Eventually we got around to singing 'Happy Birthday' rather late in the evening, saving the cutting of the cake for this morning (Spidey was very excited... chocolate cake for brunch).

Marin's determination continues to shine, impressing her physical therapist who was very complimentary of her walking and swimming this week. Marin's demeanor has also been very upbeat recently as all the Christmas cards from old friends flood in and the visits from her aunts, uncles, and cousins has definitely brightened her spirits. We expect to carry the good mood through the evening as we ring in the new year, and all through 2006 as we look only onward and upward.

We wish all of you a safe and happy new year, and we thank you once again for all your prayers and support through 2005 as it's made an amazing impact on Marin and our family.

Happy New Year!!

Marin, Nancy, Matt, Camie, Michael and Gramma Shirley


Saturday, December 31, 2005 4:47 PM CST


Happy New Year everybody,

The celebrations continue and Marin's smile shines through the holidays. Friday was Nancy's birthday and after saying goodbye to the Cavarnos in the morning, the whole family went with Marin for a good workout at the pool. After a nice big meal at a Mexican restaurant, Nancy's brithday desire for a little peace and quiet was granted in the form of a much-needed nap. Eventually we got around to singing 'Happy Birthday' rather late in the evening, saving the cutting of the cake for this morning (Spidey was very excited... chocolate cake for brunch).

Marin's determination continues to shine, impressing her physical therapist was very complimentary of her walking and swimming this week. Marin's demeanor has also been very upbeat recently as all the Christmas cards from old friends flood in and the visits from her aunts, uncles, and cousins has definitely brightened her spirits. We expect to carry the good mood through the evening as we ring in the new year, and all through 2006 as we look only onward and upward.

We wish all of you a safe and happy new year, and we thank you once again for all your prayers and support through 2005 as it's made an amazing impact on Marin and our family.

Happy New Year!!

Marin, Nancy, Matt, Camie, Michael and Gramma Shirley


Thursday, December 29, 2005 2:00 AM CST


There was a distinct sense of normalcy in this mid-week Christmas vacation day for Marin. After working with her homebound teacher for a few hours, she enjoyed a happy and eventful day cruising around downtown Seattle with her Mom, Camie, Mike, and the cousins. A nice seafood lunch, her appatetite was good, a visit to a museum, and a view from the top of the Space Needle were some of the events of the day. Marin's demeanor has been light and happy with her cousins in town, particularly her soul-cuz Katrina who's been very close with Marin since they were babies.

Marin's appetite seems to be improving as she's responding to all out efforts to get her eat and drink more. A slight swallowing issue has come up in recent days and we're going to get that checked by a doctor. In the meantime, she continues in her determination and we are so proud of her effort.

Looking forward to a bright New Year,

Marin, Nancy, Matt, Camie & Spidey along with Aunt Linda, Uncle Bruce, Katrina, Stephen, Andrew & Timmy.


Wednesday, December 28, 2005 1:32 AM CST


The holiday week continues with Marin working hard and making strides in her recovery. Her physical therapy lately has included taking some steps without the use of her cane. It's not likely she'll be getting around without help anytime soon, but seeing her take these steps is very inspiring to us, and the sense of achievement shines on Marin's face.

Spending time with her cousins this week has also been a blessing. Lots of love and laughter is wonderful medicine and Marin is more engaged than she's been since the move. Christmas here was wonderful, and along with all the wonderful cards and well-wishes, Marin received a new digital camera and a nice art eisel and paint set from Santa. Art has always been something Marin's enjoyed and we expect painting could be a nice outlet for her.

A special thanks to Camie for filling in this journal space Tuesday. What a peach! One of the great joys in our life has been the special relationship between Marin and Camie, with Marin caring for her little sis so sweetly since birth, and now Camie taking her turn as the star supporter in Marin's time of need. We are blessed.

Happy to be here & enjoying the holidays,

Marin, Nancy, Matt, Camie & Spidey... plus Linda & Bruce, Katrina, Stephen, Andrew & Timmy.


Tuesday, December 27, 2005 0:09 AM CST

Greetings from the great Northwest. This is Marin's younger sister, Camie. Our Holiday was fantastic, and the comfort of all of our relatives here in town isn't exactly the most quiet household on the block, but definately the most active and fun-filled. Today, we hung out for awhile at the house, with Marin continuing to do her therapy and all of the cousins jumping from one activity to the next, finding more and more discoveries. Tonight, the boys had their night out by going to a Super Sonics basketball game and the girls taking the followup by departing to a brief dinner at subway, yum, and disappearing to a theater to watch "Cheaper by the Dozen 2", which we all agreed to like in the end. Keep praying for my sister!

Much love, Cami and Marin

& mom, dad, & spidey


Saturday, December 24, 2005 11:55 PM CST

Well, Santa is packing his bag and starting his flight. The world believes in a lot of magic this evening. I am praying for all that magic to land here at our little home in Sammamish. Tomorrow is also the day that Christ was born. He brings hope, belief, faith, and encouragement to each and everyone of us. That hope is what fuels us to carry on, day by day. We feel we have already been extremely blessed with our friends we have made all over the world. Marin said a special prayer while going to sleep tonight that everyone will be blessed this next year as all of you have blessed her.

Marin got to enjoy a swim in the pool today. She is using a workout that Kiko the paraolympic coach gave her. She was smiling a ton in the pool. We attended a wonderful church service at Sammamish Prespaterian Church which we all lit a candle.

When we went to see the Lion, the Witch, and the Wardrobe, I couldn't stop thinking about Marin. There is a young boy named Peter leading the troops to fight the evil witch. He was young, scared, yet had an enormous army behind him to fight his battle. He wasn't alone. Isn't that the truth about Marin? There she is in the front, young, scared, yet not alone. She has all of us, her army, following her and fighting for everything she is. We are so thankful for you, Marin's army. May the blessings of Christmas bring you a sense of peace this wonderful season!!

Love, hope, and happiness,

Marin, mom, dad, Cami, and mike


Saturday, December 24, 2005 1:07 PM CST


Merry Christmas everyone! Last minute shoping doesn't sound like much fun, so Marin is going swimming on Christmas Eve. She has a work-out provided by her therapist and this will be her third session in the pool this week. Afterward, we'll enjoy family time for the holiday with Uncle Ron's family already here and Aunt Linda's family arriving later this evening, probably shortly before Santa. Grandma Shirley will be arriving shortly as well.

We've enjoyed all the terrifiv Christmas cards and well wishes from so many good friends across the country. Everyone's looking good and we wish you all a most wonderful holiday.

Merry Christmas,

Marin, Nancy, Matt, Camlyn & Spidey... plus Uncle Ron, Aunt Teryl, Landon & Tobias... & Linda & Bruce, etc., Shirley ?


Saturday, December 24, 2005 1:07 PM CST


Merry Christmas everyone! Last minute shoping doesn't sound like much fun, so Marin is going swimming on Christmas Eve. She has a work-out provided by her therapist and this will be her third session in the pool this week. Afterward, we'll enjoy family time for the holiday with Uncle Ron's family already here and Aunt Linda's family arriving later this evening, probably shortly before Santa. Grandma Shirley will be arriving shortly as well.

We've enjoyed all the terrifiv Christmas cards and well wishes from so many good friends across the country. Everyone's looking good and we wish you all a most wonderful holiday.

Merry Christmas,

Marin, Nancy, Matt, Camlyn & Spidey... plus Uncle Ron, Aunt Teryl, Landon & Tobias... & Linda & Bruce, etc., Shirley ?


Friday, December 23, 2005 10:58 AM CST

A bittersweet Thursday for Marin and our entire family. While we went about our business getting ready for Christmas, enjoying a visit from Nancy's brother Ron & his family, Marin worked her speech rehab in the morning, then spent the afternoon in the pool going through a work out with Mom & Dad. Marin was introduced to Molly & Katrina from the local swim team who've reached out to be her friends, and they made a plan to see a movie next week. It really was a good work out in the pool and we followed that with dinner at a family restaurant with all the cousins. It was during dinner that we got the phone call from Grandma Shirly informing us that her husband Jack passed away. This was not unexpected but still a very sad moment for all of us. Marin had tears in her eyes as we tried to be discreet with the difficult news in front of the smaller chidren over the dinner table.

Jack Resor came in to our family eleven years ago when he and Shirly were married. Acquainted many years ago, they united later in life and enjoyed more than a decade of family, fun, and companionship together. A marine corp veteran who served in World War II, Jack was an engineer educated at Purdue and enjoyed a successful career before retiring. He assimilated in to our family easily, enjoyed Shirley's grandchildren as though they were his own, and became a good friend to Shirleys children and spouses. Jack had been in failing health for the last few years with complications of diabetes, yet he remained active and interested. He passed away Thursday at the age of 80, and as we all agreed when we heard the sad news, in life, Jack didn't get cheated. Rest in Peace, Jack.

Please pray for Shirley and so many others who are enduring a loss at this holy time of year.

In fond memory of Jack Resor,

Marin, Nancy, Matt, Camie & Mike, and Uncle Ron, Aunt Teryl, Landon & Tobias


Thursday, December 22, 2005 0:54 AM CST

On the whole, Wednesday really summed up what Marin's struggle has been all about. To begin with, she woke up feeling kind of crummy but she didn't hesitate to get out of bed and get moving on her rehab. Because of an amazingly generous group of good-swim-samaritans, rehab sessions today were made possible because these good guys threw their Christmas spirit to Marin and have bridged the insurance gap for the rest of the month. This is huge! So while she felt lousy all day, Marin knew that others were giving so that she can get better and she wasn't going to let them, or herself down. She worked intently with her physical and speech therapists, then handled school work with her terrific homebound teacher who presented Marin with an adorable Christmas Angel that's as cool as a peach daquiri (Marin had told Ashley she wanted an angel for Christmas). Marin seemed to have a really good day, even though she really didn't feel well.

Later in the afternoon, Marin's smile was in full bloom when Uncle Ron, Aunt Teryl and their boys arrived for a Christmas visit. Dinner went down better than breakfast & lunch, and Marin played a marathon game of checkers with Camie's pal Jenn, a smart competitor,... and Marin won! (Sorry, Supermom). This was most impressive because it really underscores how far Marin has come in the past several weeks... a month ago she probably couldn't have remembered how to play checkers and today she was working the board like Patton across Europe.

A tough day in many ways, but with good will from many directions it was uplifting and inspiring, just as a recent column in Swimmingworld.com written by one of our guestbook contributors. This really gave Marin a boost when we read it this evening and we've attached the link here:
http://www.swimmingworldmagazine.com/lane9/news/10450.asp

Make it an even better Thursday and share it with as many as you can,

Marin, Nancy, Matt, Camie, Michael, & Jenn, Uncle Ron, Aunt Teryl, Landon, and Toby... and anyone else that stops by.



Wednesday, December 21, 2005 8:21 AM CST


We're seeing wonderful signs of the Christmas spirit all around, beginning with the smiles and laughter that are beginning to come easier for Marin. Once again the girls and Mike went out on a holiday season adventure, stopping in on a rainy day Tuesday to see a movie, "The Chronicles of Narnia". Since Dad missed it, he had to be filled in and the excitement on Marin's face while talking about the film was as enjoyable as anything. Indeed Marin's face has been brighter in general due to some changes in her medication. Since her surgery, she had been on a steroid used to keep the swelling in her brain under control, but the side affects included some pretty dramatic swelling in her face and an increase in acne. This has had Marin quite self conscious and not all that thrilled about meeting new people. The good news is that since weaning her off the steroid over the past couple weeks she's seeing a big improvement. The puffiness is subsiding with her face returning to it's normal shape and the acne is definitely improving. She just might even consent to letting us post some new pictures here soon! More smiles from Marin yesterday when she read a bundle of newly arrived Christmas cards, received a package from her pal Jordan, and spoke with Uncle Dan on the phone.

Back on the subject of Christmas spirit, we have to send a huge thank you to a gang of swimming studs who've made an amazingly generous contribution to Marin's rehabilitation effort. Because of their generosity, she'll be getting her essential professional help over the next two weeks where a gap in our insurance had caused a dilemma. Like the truth in the latest joke of the day, God does provide... and in this case he's a bunch of guys that wear speedos.

Swimming in the spirit,

Marin, Nancy, Matt, Camie, Jen & Spidey


Tuesday, December 20, 2005 2:14 AM CST


Marin went on an outing to downtown Seattle Monday with Mom, Camie, Mike and Jen. It was a sightseeing adventure as our friend Jen enjoys her first trip to the northwest. The hard part for Marin is going out in public when she feels so fragmented. Getting around is difficult so doing things the other kids are having fun at is tough on Marin. She doesn't make an issue of it, but it's heartbreaking to see her in these situations knowing it's so difficult for her. At times like these, we try to stay focused on the day to day healing, the hope for her future, and stay positive for Marin's sake and our own. The kind notes of encouragement here on this web site are a big help to all of us during times like this.

This third round of chemo is over now and it went pretty well for Marin, with only a little nasuea Monday morning. As always, she remains determined when it comes to her daily work, and even without professional rehab help right now, Marin is keeping a good attitude about trying to improve. We'll be swimming some more this week while looking forward to visits from Uncle Ron's family and later Aunt Linda's family too. We hope everyone reading this can enjoy your families this Christmas season.

All the best,

Marin, Nancy, Matt, Camie, Spidey & Jen


Sunday, December 18, 2005 11:14 PM CST


A bright, beautiful day here in the Northwest was a full day for our dear Marin. In the middle of her third cycle of chemotherapy, she's going strong and today she made the most of it by working with Dad on her physical rehab. This included a long stretch on the stationary bike, followed by a nap, then an afternoon in the pool. One of Marin's nurses at Children's hospital is also a swim coach for a team of physically challenged swimmers. The group gets together just once or twice a month, but it's a great lift for Marin. Today was her second time swimming with this group and Marin was showing great form. She was in her element, doing all the strokes and even managed a flip turn for the first time since before her surgery. Marin still measures herself by high standard and thus she's not all that impressed with executing a flip turn, but to see her beautiful stroke still evident while she operates with little more than one side of her body is amazing. Toward the end of the workout the coach had the swimmers race for a few laps and Marin's competitive fire kicked in. It was a lot of fun to see.

We want to thank all those that offered support and made suggestions to helps with our current rehab dilemma. We'll make it through and we really appreciate the help
We hope you all had a great weekend too.

Sunshine in Seattle,

Marin, Nancy, Matt, Camie, Jen, & Spidey


Saturday, December 17, 2005 9:50 AM CST


Good weekend to everyone,

Excellerating in to the holiday bustle we hit a major speed bump with Marin's rehab. Just as we feel we hit stride with a group that does mostly in-home services, we learned our insurance-allotted hours for the year were burned up this week. Call it mis-management of the hours, but the affect is Marin won't be getting any professional rehab for the next two weeks. Maddening, yes... but Mom & Dad will just have to kick it up and put to use what we've observed and learned (any suggestions here?). For her part, Marin's progress continues slowly but noticeably, particularly in the mental-cognitive functions. She performs her speech exercises with much better accuracy and she's getting better and more accurate with her school work, including reading and 'rithmatic. She went swimming Friday morning with her physical therapist and really enjoyed being in the water for the third time in five days. We're also swimming with the disabled swim team on Sunday afternoon.

Each day we're receiving more and more Christmas cards in the mail and the support is wonderful. Thank you all. Yesterday we also received a beautiful floral centerpiece from Aunt Jeannie that looks great on our holiday table. Talk about brightening-up our day! Nancy was thrilled and that's worth gold! Thanks Aunt Jeannie, nice touch.

We're enjoying a visit from Camie's good friend Jen this week and getting ready to welcome various members of Nancy's family for holiday visits. We're trying to keep the stress of entertaining to a minimum, so we won't have a spotless house and they'll be making their own beds!

Sharing the shower in Seattle,

Marin, Nancy, Matt, Camie & Spidey


Friday, December 16, 2005 1:06 AM CST


It's wonderful reading the guestbook here and hearing from so many good friends, new and old, some we haven't even met yet. The positive notes always make Marin smile when she reads them (or we read them to her). She's getting better at reading and retaining material and it's showing in her school work. Most if the material is remedial, but she's come a long way and shown that the brain has an amazing capacity for healing.

Physically she seems to be getting some stirring out of her hamstring in her left leg which before this week has been completely unresponsive. This means that with continued improvement, she may soon be able to lift her knee which will make walking much easier. As it is, her gate is getting better, she's able to take stairs one over the other, and while it's still a struggle, we are seeing slow but steady improvement. Her occupational therapist had her take a few steps without her cane, and she was able to do it. Pretty impressive.

Marin enjoyed a phone visit with her best pal Jordan calling from Atlanta and as always it made her day. Marin was thinking of all her swim pals last weekend when there was a big meet and Jordan filled her in on the latest.

It's day two of this cycle of chemo and so far so good. Marin did report a little dizziness today, but we suspect this may be due to the withdrawal of the steroid she had been on. Once her system equals out, we hope that will go away.

We're wishing everyone a great weekend ahead.

Just Chillin',

Marin, Nancy, Matt, Camie, & Mike


Thursday, December 15, 2005 0:36 AM CST


Marin saw the oncologist today and started her third round of chemo. She's on a monthly cycle of the oral chemo Temador, which consists of five days of taking the medication at night, then the rest of the month off. Her first two rounds went pretty smoothly, with only a little naseau to speak of. We've been slowly weaning her off of the steroid she's been taking for swelling and right now she's off the drug but we're watching her closely because she's been having dizzy spells while we weaned her. I tell you, the poor little dear is taking so many drugs right now it's a wonder she can stand up. But she does... everyday... and goes to work... and gets better.

Marin had a nice phone conversation with her good rehab buddy Stephanie back in Atlanta. It's something special to hear these two chatter back and forth in a long conversation knowing that just a few months ago, neither of them could get a word out. Marin certainly did form a special bond with Stephanie and they're friends for life. This Friday will be Stephanie's last in day rehab and we wish her the best of everything as she begins her transition back toward her normal life.

Marin and Dad also had a great visit with some of the members of the Order of Malta, a Catholic organization that is sponsoring a healing pilgrammage to Lourdes, France next spring. Marin is a candidate to make this pilgrimmage and we're praying she gets the opportunity. The power of prayer has been so evident in her challenge so far, we have complete faith in the Lord.

A full day of rehab is on the schedule Thursday so it's lights out here. Have a great day everybody.

Marin, Nancy, Matt, Camie and Spidey

** But wait! There's more! After entering this journal log, I took a moment to catch up on the latest entries in Marin's guestbook, as I always do... And I LOVED the Mountain Story submitted by Mary Wagner. I'd never heard this before, it's wonderful and I suggest everyong look back in the guestbook to read it, it'll make your day. Thanks Mary. MM


Thursday, December 15, 2005 0:05 AM CST


Marin saw the oncologist today and started her third round of chemo. She's on a monthly cycle of the oral chemo Temador, which consists of five days of taking the medication at night, then the rest of the month off. Her first two rounds went pretty smoothly, with only a little naseau to speak of. We've been slowly weaning her off of the steroid she's been taking for swelling and right now she's off the drug but we're watching her closely because she's been having dizzy spells while we weaned her. I tell you, the poor little dear is taking so many drugs right now it's a wonder she can stand up. But she does... everyday... and goes to work... and gets better.

Marin had a nice phone conversation with her good rehab buddy Stephanie back in Atlanta. It's something special to hear these two chatter back and forth in a long conversation knowing that just a few months ago, neither of them could get a word out. Marin certainly did form a special bond with Stephanie and they're friends for life. This Friday will be Stephanie's last in day rehab and we wish her the best of everything as she begins her transition back toward her normal life.

Marin and Dad also had a great visit with some of the members of the Order of Malta, a Catholic organization that is sponsoring a healing pilgrammage to Lourdes, France next spring. Marin is a candidate to make this pilgrimmage and we're praying she gets the opportunity. The power of prayer has been so evident in her challenge so far, we have complete faith in the Lord.

A full day of rehab is on the schedule Thursday so it's lights out here. Have a great day everybody.

Marin, Nancy, Matt, Camie and Spidey


Wednesday, December 14, 2005 0:18 AM CST


Hi everyone,

Yesterday I wrote about Marin's appetite and how her nutrition intake has been a bit of a concern, so we're happy to report that Marin totally scarfed down a full plate of steak, potato and veggies tonight. When she really sets her mind to it, that girl can still eat! And sleep, too. Hey, maybe she's just a typical teenager after all.

One new development has her smiling a little more... where she lost her hair due to the radiation therapy, we're starting to see some follicle activity. Essentially, she lost half her head of hair and although she looks really cute in hats, Marin hopes to go au natural as soon as possible. There's no telling how long it might take to regrow her hair, or how it might come in, but you can see something up there's working and that's a good start.

Thanks to all who've called and left notes of concern for us during this stressful time. The emotional support helps a great deal. And our phone is working once again, so please feel free to ring when you can.

Hair today,

Marin, Nancy, Matt, Camie & Spidey


Tuesday, December 13, 2005 0:49 AM CST


Apologies to all for the last few days of silence from Seattle. As we say in the TV biz, it's the dreaded technical difficulties. Our phone is still out of order for right now but the internet's back up so that's a start. If you need to reach us by phone, use the cell numbers.

On balance, these past few days have been good ones for Marin. She swam both Sunday and Monday evening, marking the first time she's gone swimming on back to back days since she started rehab. We'll call that progress. Her strokes are looking better and better and she was even up for a couple match races with Dad in the pool tonight. Her competitive fire still burns, I can tell you that, and she's gaining some admirers among the people who see her working out regularly. Not that it's getting any easier, nor is she necessarily getting stronger right now. Her appetite has become a concern and Marin has dropped some weight. We're doing our best with nutritional supplements but she just isn't burning calories the way she used to and she simply doesn't eat very much. This isn't something terribly alarming, and Marin is still very much in healthy weight range but when you're used to seeing her consume like a swimmer, it's quite a change.

Marin's biggest smile today came from long distance in a phone call from her coach Chris at SWAT. She loves speaking to friends by phone and Chris has always made Marin feel special. He filled her in on the GA senior state meet last weekend and we thanked him for the autographed kickboard her teammates sent to cheer her up. It certainly did the trick.

We're back on-line and still kickin' in Seattle,

Marin, Nancy, Matt, Camie and Spidey.


Monday, December 12, 2005 8:30 PM CST


Hi Everybody,

Sorry for the silence. Our internet (and phone) have been out of whack all weekend. We're in the process of getting the technical difficulties worked out and we'll be back to business as usual.

Congrats to everyone at SWAT in taking the senior state by a huge margin. We're going swimming with Marin right now. We'll update fully later this evening.

All the best,

~The Morrisons


Thursday, December 8, 2005 7:21 AM CST

Hi to all our dear friends supporting our journey. This is Nancy at 5:00 a.m., once again, sleepless in Seattle. I will admit, it's been rough. I have been trying to be as positive as humanly possible and don't feel I have held up to my bargin. Even making entries in the journal have been difficult for me. Your messages of encouragement that are still being posted show me everyone is still right there with us, and believe me, we all hang on every word, note, gift, etc. One of our dear friends we have made through this at the Three village Swim Club sent some awesome t-shirts that touched us all. We can't thank each and everyone one of you for this support. I think the realization of the situation is settling in. We do in fact have a very long journey ahead of us and with the move, Marin's small improvements, the unsettleness of the other two kids, it's taking it's toll on dear old mom! I feel that God has given me more than I can handle. I am asking each of you as you pray for Marin, that you would ad a special little prayer for me to be able to continue to find the strength to be the positive, energetic, loving, and helpful mom I want to be.

Marin is improving, very slowly, daily. Today she had a rehab appointment and they felt the improvements are still moving right along. The fact that she has no movement, as well as no sensory feeling in her arm and leg past the joint, they feel is a concern. My hope that she is young, and that prayer works, is belief that these things will beat the odds and will return.

Marin has been feeling dizzy the past few days due to what I think is new medicine they have put her on for acne. Right on the bottle it says, "may cause dizziness." She is also trying to come all the way off the steriods, which could contribute to this. As the effects of radiation and steriods burn out of her body, her skin has become very broken out. She's quite self-concious about it.

A positive note, Marin continues to show great improvements with comprehension and learning. Her sense of humor has been shinning through in little conversations we have throughout the day. Michael is definately a source of entertainment for her and he's right in there celebrating every new move and word. He kisses her frequently and rubs her right side saying, "poor Marin."

I hope everyone is enjoying the holiday season so far. I have tried to get out a little to capture the joy of Christ that surrounds the season. I have also started to make a few friends, all which feeds the sole.

Hugs go out to each of our dear friends from Marin and I, as well as the rest of the gang.

happy day, Nancy and Marin, Matt, Camie, and Spiderman


Thursday, December 8, 2005 1:13 AM CST


Marin's overall progress received some positive reinforcement when she visited her rehab doctor Wednesday. One month after her first assesment here, her doctor noted Marin is steadier on her feet, when she stands and sits, and her stride forward was more balanced.
When asked if she felt the improvements, Marin said she didn't, but the truth is she's making small gains. The purpose of the appointment was to justify continuing her rehab schedule and the doctor concurred that Marin should continue with her program for at least the next few months. Good news. She seems to thrive on being as active as she can be, even if she tires easily, and overall I think she's been happier lately. Thursday is a lighter day on the rehab schedule so Marin is going swimming in the afternoon. Life is flowing forward.
Thanks as always for your kind notes, support, and prayers.

Always in the swim,

Marin, Nancy, Matt, Camie, and Spidey




Wednesday, December 7, 2005 2:49 AM CST


We've shared quite a bit here recently about Marin's emotional well-being and Tuesday was definitely a good day. Her cognitive improvement continued to show in her speech therapy session and I sense Marin's confidence beginning to pick up. Among the simple wonders of our world right now is the sound of laughter, and Marin was the source of plenty during a long mid-day break. Her little brother Michael took it upon himself (as he often does) to supply the in-house entertainment, and as we went on with the business of the household, Michael was holding court with Marin as his audience of one. At one point, I simply stopped to appreciate the giggling coming from the next room and realized it was the first time in months that Marin has seemed to feel happy for more than a few moments. This was wonderful.

So too was a visit from a very nice gentleman who is a member of the Order of Malta, a Catholic order dedicated to the healing of the sick. A good friend of our family nominated Marin for consideration for a pilgrimage to the healing grotto at Lourdes, France next spring. We're working on the application now and would be honored if Marin were selected to make the journey. Our family friend is among the thousands of faithful who make the pilgrimage annually and she has made amazing progress from a near-fatal accident. It's the power of faith and prayer and a little something more than that.

Later, a little social time with the 'Okinawa Swim Mom' and her family at the graduation of her daughter from the fine arts program at UW. A slice of life returning to normal, complete with smiles and laughter.

Enjoy it while we're here,

Marin, Nancy, Matt, Cami & Michael


Monday, December 5, 2005 11:22 PM CST


Up and at 'em Monday, Marin returned to her daily routine of intense rehab and tackled her challenges with energy and determination. Physical rehab, speech, and occupational rehab... a quick nap, then a most pleasant encounter as the wonderful "Okinawa Swim Mom" stopped in for a visit. Linda has been a committed supporter of Marin and our family through this website and her entries in the guestbook have been very uplifting. Stationed in Japan, she is in Seattle for a family event and she made a strong effort to come to our home to meet Marin. A great example of the power of Caring Bridge, we felt we made a lifelong friend and finally meeting her in person was even better than we could expect. Marin was very happy to meet her and enjoyed the visit very much.
Afterward, Marin studied for an hour with her homebound teacher, who reports that Marin is handling language and math tasks with much better accuracy than she had been only a week before. All in all, it was a very positive day for the little swimmer that keeps on stroking. Thanks as always for your prayers that continue to work.

In Faith,

Marin, Nancy, Matt, Cami & Spidey


Monday, December 5, 2005 2:18 AM CST

Marin's progress toward physical recovery is evident in small victories each week; slight improvement in the movement of her right shoulder and elbow, the ability to lift her foot up a step a little easier, and more words and sentences flowing louder and clearer when she speaks. But her emotional healing is harder to measure. Sunday after church, we took a drive down to the waterfront where we took a short stroll along a community park. It was a cold but beautiful day and we felt it was good for Marin to get outside for some fresh air and scenery. From the hospital to the Ronald McDonald house to our new neighborhood, Marin has been mostly indoors for the better part of four months. But she does get chilled easily and after our brief visit to the park Marin became sad on the ride home. Not for the first time, but the gravity of her situation seemed to hit her; the limitations she has now and all that she may be missing out on. The heartbreak of her tears was profound. The only sense I could make of this is that her sadness has to be a part of the healing process and it's important for her to feel the depths of these emotions in order to deal with her reality. The episode underscores just how remarkably well Marin has handled her situation overall, but reminds us that there needs to be time to grieve as well.
A good sign of her strenght is that soon her despair passed, and later in the day Nancy took the kids to a movie. This is always one of Marin's favorite activities and she enjoyed "Yours, Mine, and Ours" with Cami & Mike. Monday it's back to a full schedule of rehab and the little victories she strives for every day. Thanks for sharing in Marin's journey.

Looking forward with each day,

Marin, Nancy, Matt, Cami & Mike


Sunday, December 4, 2005 3:19 AM CST

Saturday was a good day for Marin as she seemed to be smiling quite a lot, something we've seen far too little of in recent months. Marin went swimming for more than an hour and she was terrific. She worked with one of our excellent rehab therapists in the pool and did around 30 laps. Her famous dolphin kick is making a comeback and even her half-bodied buttfly is looking pretty respectable. During her time in the pool, Marin was inspired by her SwimAtlant teammate who were in a meet this weekend. We're all praying for some national cuts! to go with all those PR's (Go Swat) and for another great season for Collins Hill High.

So from Seattle, we're signing off for today.
All the best,

Marin, Nancy, Matt, Cami & Michael


Saturday, December 3, 2005 3:08 AM CST

We all get the e-mail chain letters from time to time, and I thought the following was particularly touching, so I'm passing it along. It arrived while two of Nancy's dearest friends flew in from California for two days of intense moving help. Sherri and Betty were incredible for 48 hours, helping organize our house and turn it in to a home, and relieving a ton of stress on Nancy. Now that's what I call love! Thanks ladies.

Enjoy the following and share it.

What does Love mean? A group of professional people posed this question to a group of 4 to 8 year-olds, "What does love mean?"

Here's some of the best answers:

* "When my grandmother got arthritis, she couldn't bend over and paint her toenails anymore. So my grandfather does it for her all the time, even when his hands got arthritis too. That's love." Rebecca- age 8

* "When someone loves you, the way they say your
name is different. You just know that your name is safe in their mouth." Billy - age 4

* "Love is when a girl puts on perfume and a boy puts on shaving cologne and they go out and smell each other." Karl - age 5

* "Love is what makes you smile when you're tired."
Terri - age 4

* "Love is what's in the room with you at Christmas if you stop opening presents and listen." Bobby - age 7 (Wow!)

* "If you want to learn to love better, you should start with a friend who you hate," Nikka - age 6

* "Love is when your puppy licks your face even after you left him alone all day." Mary Ann - age 4

* "I know my older sister loves me because she gives me all her old clothes and has to go out and buy new ones."
Lauren - age 4

* "You really shouldn't say 'I love you' unless you mean it. But if you mean it, you should say it a lot. People forget." Jessica - age 8

**** And the final one -- Author and lecturer Leo Buscaglia once talked about a contest he was asked to judge. The purpose of the contest was to find the most caring child. The winner was a four year old child whose next door neighbor was an elderly gentleman who had recently lost his wife.

Upon seeing the man cry, the little boy went into the old gentleman's yard, climbed onto his lap, and just sat there. When his Mother asked what he had said to the neighbor, the little boy said, "Nothing, I just helped him cry."

When there is nothing left but God,that is when you find out that God is all you need. Take 60 seconds and give this a shot! All you do is simply say the following small prayer for the person who sent you this: Father, God bless all my friends in whatever it is that You know they may be needing this day! And may their life be full of your peace, prosperity and power as he/she seeks to have a closer relationship with you. Amen.

Then send it on to five other people, including the one who sent it to you. Within hours you caused a multitude of people to pray for other people. Then sit back and watch the power of God work in your life.
****

Marin will be swimming on Saturday. Do something you really love, and enjoy a great weekend.

Safe in the snow,

Marin, Nancy, Matt, Cami & Spidey.






Friday, December 2, 2005 0:15 AM CST

Well today, it DID snow here in Seattle!! Flakes the size of dollar pancakes started falling around noon and by the time Cami got home from school, our neighborhood was a regular winter wonderland! The view out of our kitchen window was spectacular with every tree branch and fence post frosted with snow. Marin was smiling at the terrific view but was too cold to frolick outside. Cami and a friend went looking for a snowball fight, and Spidey and Dad schooled some littler kids on the block in the fine art of winter warfare. Ah, making friends one facefull of snow at a time!
Marin had several doctors appointments this week and the upshot is that her key indicators all look good. Her blood test showed that her levels of red & white cells and plateletes are all excellent, meaning her latest round of chemotherapy hasn't been zapping her immune system. That's always a major concern for patients undergoing chemo, especially with the cold season creeping in. Marin has been quite sleepy lately, but it's good to know that there doesn't seem to be any alarming medical concern.
Even better than the snow today, Marin enjoyed phone calls from two of her dearest friends. Jordan, her best swim pal, called and really brightened her day. Later, Marin received a call from Stephanie, her good rehab buddy and Ronald McDonald House mate. When she's relaxed and talking with friends on the telephone, Marin's conversation is really quite good. Her homebound teacher was here when she was speaking to Stephanie, and she was amazed at how well Marin's speech operated when she's simply in conversation. It confirms that her neuro capability is there, and that recovery is on the way.
Our faith remains strong as the journey continues each day. As always, thank you for your inspirational notes prayer support.

Under a blanket of snow,

Marin, Nancy, Matt, Cami & Spidey


Tuesday, November 29, 2005 10:50 PM CST

Hi Everybody,

A busy week hit hard Monday and we're just now catching our breath. A full schedule of rehab continues for Marin, and we continue to see incremental improvement in most areas. Her speech, reading, and cognitive comprehension is getting better and it's very encouraging to see her therapists so enthused. We only wish Marin could feel better about herself as she continues to have a hard time seeing the light at the end of the tunnel. In truth, the light may be farther off than any of us would like, but she definitely is gaining ground. Physically it's been hard on Marin lately. She's been a bit shaky on her feet and very tired throughout the day, and it figures that her daily doses of multiple medications could be a reason for her instability. After an eye appointment today, she'll be seeing her oncologist Wednesday. In the meantime, she remains determined in her rehab, going for 30-40 minutes on the stationary bike, pretty cool. She usually finds room for a smile when reading the entries in her guest book, the nice cards and letters that come in the mail, and playing games with her brother and sister. Life is good, it's just harder sometimes. We'll keep you posted.

Cold but not snowing in Seattle... yet,

Marin, Nancy, Matt, Cami & Spidey
(Grandma Sharon left this morning... Thanks Ma!)


Tuesday, November 29, 2005 9:24 PM CST

Hi Everybody,

A busy week hit hard Monday and we're just now catching our breath. A full schedule of rehab continues for Marin, and we continue to see incremental improvement in most areas. Her speech, reading, and cognitive comprehension is getting better and it's very encouraging to see her therapists so enthused. We only wish Marin could feel better about herself as she continues to have a hard time seeing the light at the end of the tunnel. In truth, the light may be farther off than any of us would like, but she definitely is gaining ground. Physically it's been hard on Marin lately. She's been a bit shaky on her feet and very tired throughout the day, and it figures that her daily doses of multiple medications could be a reason for her instability. After an eye appointment today, she'll be seeing her oncologist Wednesday. In the meantime, she remains determined in her rehab, going for 30-40 minutes on the stationary bike, pretty cool. She usually finds room for a smile when playing games with her brother and sister. Life is good, it's just harder sometimes. We'll keep you posted.

Cold but not snowing in Seattle... yet,

Marin, Nancy, Matt, Cami & Spidey
(Grandma Sharon left this morning... Thanks Ma!)


Sunday, November 27, 2005 9:51 PM CST


Wrapping up a long and eventful holiday weekend, Marin was feeling a little worn out Sunday evening. A couple days off from rehab didn't mean inactivity as Marin went for a long swim on Saturday and rode the stationary bike for more than a half hour on Sunday. Her determination and stamina are impressive but she does need her extra rest, especially when she exerts herself. She could still feeling the physical effects of the radiation and we hope she'll begin to feel better soon.

Sunday we enjoyed a nice visit from some good college friends from UCLA that we reconnected with here in Seattle. Starting to build a social circle makes it feel like we're settling in. We hope everyone enjoyed your friends and family this weekend as much as we did.

Sleepy in Seattle,

Marin, Nancy, Matt, Cami & Spidey


Saturday, November 26, 2005 1:43 PM CST


*Please note our corrected new phone number with our address below. Our home number in WA is (425)657-0041.

Happy Saturday to everyone,

The bright sunshine here in the northwest comes with a cold blast, but we'll take it! Thanksgiving was great and we're finishing off the last bit of left-overs as Michael devoured what was left of the turkey Friday. For the third time this week Marin went swimming at a local club where the swimteam, coaches, and parents have been terrific in making her feel welcome. Getting out of the house is the hard part, but it's important for her to get out and see people and once she's in the pool, she's feeling great. It's pretty amazing to see her swimming a very respectable freestyle and backstroke using only half her body... she tries the butterfly but hasn't mastered that yet. Breastroke will be her toughest challenge. The workouts and social interaction is good for her, although she's still a bit self-conscious about her difficulty in carrying on a conversation. Little by litte, Marin has been getting better but she doesn't see it as much as we do around her. One noticable step forward is her ability now to walk down the stairs reaching over every stair with each step. It's the kind of progress that shows she's gaining more ability with each day. It's fun to see Michael encouraging her, and Cami has been a wonderful help in every way. We hope everyone enjoys the remainder of your holiday weekend.

Thankful for small steps,

Marin, Nancy, Matt, Camlyn, Spidey & Gramma Sharon


Thursday, November 24, 2005 1:33 AM CST


*Please note our corrected new phone number with our address below. Our home number in WA is (425)657-0041.

Happy Thanksgiving Everyone!

This year we're giving thanks from an entirely new perspective. There are so many aspects of our lives that we may think we truly appreciate, but those blessings have come in to much sharper focus in our time of difficulty. We wish all of you who've supported us in Marin's struggle can have the same clarity of the importance of family, friendship, life, love, neighbors, coworkers, acquaintances, caring strangers, and above all, faith. It's been our hardest time and still we're able to count our good fortune with so many tangible symbols of how much people care; the SwimAtlanta kickboard signed by all of Marin's friends and teammates that arrived in the mail, cards and letters from friends and others we've never met arriving daily with words of encouragement, the heartfelt sympathies in Marin's guestbook here from so many friends, relatives, and others worldwide that remind us every hour that we are not going through this challenge alone, the box of swimwear and sports clothing from Marin's Collins Hill High coaches and teammates that she wears so proudly along with her letter jacket, another package of cool sports gear from our friends the Seattle Mariners, and the Thanksgiving feast provided by Matt's siblings and their families. It can be emotionally overwhelming when so many people are helping you, but it also touches your spirit in a way that's hard to describe. Under horrible circumstances, it's a wonderful experience. And if we tune in to it, I don't think it takes a living crisis to recognize, appreciate, and extend these aspects of our humanity. Thanks for sharing so much of yourselves with us. Enjoy your family, friends and neighbors this holiday.

Having another piece of pie,

Marin, Nancy, Matt, Cami, Michael & Gramma Sharon


Tuesday, November 22, 2005 8:09 PM CST


*Please note our corrected new phone number with our address below. Our home number in WA is (425)657-0041.

With Thangskiving approaching, we're reminded how important it is to consider our blessings especially in difficult circumstances. There's always something positive to reflect on, and that in itself can be a remedy for stress. Marin finished her second round of chemo Sunday night showing very little trouble through this stage. If anything, she's been a little more fatigued over the past few days and that's certainly understandable. After a little sleeping in, she was back working hard at her rehab and she is definitely making improvements, even if it seems un-measurable to her. More flexibility, more strength, better motion and better speech are the results of healing, hard work, and lots and lots of prayers. She still has a long way to go but we remain confident she'll cover that ground.

This evening Marin with Nancy, Cami and Mike went to a local club to work out in the pool. It's a considerable effort to get it all together, especially with Spidey spinning his webs everywhere, but Nancy's doing an amazing job going the extra mile to get Marin wet. It's the second time in three days that Marin will have been in the water. A number of swim organizations here in the Northwest have extended their support and we really appreciate how the good people here have reached out to us and how the swimming community everywhere has rallied around our little girl. Thank you all for you great care, concern, and most importantly your prayer support.

Toweling off for tonight,

Marin, Nancy, Matt, Cami & Spiderman


Tuesday, November 22, 2005 7:04 PM CST


*Please note our corrected new phone number with our address below. Our home number in WA is (425)657-0041.

With Thangskiving approaching, we're reminded how important it is to consider our blessings especially in difficult circumstances. There's always something positive to reflect on, and that in itself can be a remedy for stress. Marin finished her second round of chemo Sunday night showing very little trouble through this stage. If anything, she's been a little more fatigued over the past few days and that's certainly understandable. After a little sleeping in, she was back working hard at her rehab and she is definitely making improvements, even if it seems un-measurable to her. More flexibility, more strenght, better motion and better speech are the results of healing, hard work, and lots and lots of prayers. She still has a long way to go but we remain confident she'll cover that ground.

This evening Marin with Nancy, Cami and Mike went to a local club to work out in the pool. It's a considerable effort to get it all together, especially with Spidey spinning his webs everywhere, but Nancy's doing an amazing job going the extra mile to get Marin wet. It's the second time in three days that Marin will have been in the water. A number of swim organizations here in the Northwest have extended their support and we really appreciate how the good people here have reached out to us and how the swimming community everywhere has rallied around our little girl. Thank you all for you great care, concern, and most importantly your prayer support.

Toweling off for tonight,

Marin, Nancy, Matt, Cami & Spiderman


Monday, November 21, 2005 10:52 PM CST


*Please note our corrected new phone number with our address below. Our home number in WA is (425)657-0041.

Good evening. Here we are in the great Northwest, cold but not freezing, content but not bursting with joy, sleeping but not soundly. Actually, Sleepless in Seattle is an accurate statement, not only for Tom Hanks, but for some of us Morrisons as well.

We continue to plug away at Marin's battle for good health. We continue to remain extremely hopeful for her complete and total recovery, and have not given up hope for anything less. She also continues to challange her therapist on a daily basis with her strong will and determination to achieve daily goals. A few days ago, we encorporated a daily ride on the exercise bike. We are seeing this as a possible way to activate her hamstrings which continue to be stubborn about working. We strap her arm onto the handlebar and she tries to hold on to the handlebar as much as possible.

Yesterday, we went and swam with a para-olympic team. It was definately an eye opening experience with some swimmers without arms or legs making their way back and forth across the pool. The coach of the team was the paraolympic coach in Athens and was impressed with Marin's ability. She worked her hard giving her multiple sets to swim. Marin was smiling as the time went on. She swam for a little over an hour and was sad to have to get out. Her one-armed backstroke was looking great and she was actually pretty happy about it. It just shows how important the water is to her, which we all have known all along. We need to make a priority to get her in the pool several times a week. It has been hard with all the moving and settling. It's exhausting getting her suit on, and then afterwards, the shower, changing, etc. Marin wants to do everything as much as possible by herself so being in a hurry is not an option at a time like this. Having Cami and Michael to care for also makes it pretty tricky. I can't imagine familys who have delt with this challange their whole lives. Wow!! What a accomplishment.

I can't tell you have valuable your support system is to our family now. I feel like we have all these friends around us even though we know so few people here in Seattle. Keep those prayers coming and we will continue to thank and pray for each and everyone of you.

Thinking about having to do Thanksgiving in three days and a little concerned,

Nancy, Marin, Matt, Cami, Michael, and Grandma Sharon


Saturday, November 19, 2005 8:28 PM CST


*Please note our corrected new phone number with our address below. Our home number in WA is (425)657-0041.

After a nice family outing Friday to see the new Harry Potter movie (it's great), we hit the weekend altogether a bit worn out. Marin worked exceptionally hard with rehab specialists all week as well as started having sessions with a tutor from school. She also did a Saturday morning session of PT, all of this underneath the fact that she started her second round of chemo. While she's meeting her challenges without complaint, it's clear she could use some good cheer. Social contact has been a problem... we've started to meet some of the neighbors but Marin's situation means she's had limited contact with people her own age. Marin misses her friends. Nancy does too, we all do,and getting adjusted to the new house is more of a chore than a joy right now. Still, the folks here in the NW have been very welcoming and new friendships are being sowed.

Making it Day by Day,

Marin, Nancy, Matt, Cami & Mike


Friday, November 18, 2005 0:25 AM CST


*Please note our new phone number along with our address below. Our home phone in WA is (425)657-0041.

Marin started her second round of chemo last night and so far, so good. Her doctor prescribed a higher dose of the oral chemotherapy called Temador. A higher dose but for a much shorter period of time, only five days this time with the rest of the month off. This will likely be the pattern for a while. Marin had a slight upset stomach overnight, but she 'kept it in' and she felt pretty good Thursday. She continues to work very hard in her rehab and she started her school tutoring today as well. While she has trouble expressing some words and sentences, she is very cognizant of everything and does very well in reading comprehension... so just because she can't always say it, her mind is in good working order. As a reward for her hard work, we're going as a family to see the new "Harry Potter" movie on Friday, thanks to a kind Northwest benefactor who scored us tickets! Thank you!!

Good times,

Marin, Nancy, Matt, Cami, & Mike


Wednesday, November 16, 2005 10:23 PM CST

Welcoming Wednesday. Yea, good news from the MRI department. After spending all day, several hours waiting, we were confirmed with the good news that Marin's tumor has not grown since the scan done a month ago. I wish it could have shrunk and gone away but I have learned not to look a gift horse in the mouth.

While at the Children's Hospital here in Seattle, Marin also go a flu shot and had the brace on her leg adjusted a little because it was causing some blisters on her foot. It's hard to monitor this because she still has no feeling on her foot.

Marin's energy level seems a little low now. We asked the Doc about this and he said it is normal a few weeks out from the radiation treatment. They also gave us a new round of chemo to give Marin. It is to start this evening and last for five days. The dose is twice as much as the initial one so we're not sure how she's going to tolerate it. The blood test done today showed all her white blood cell counts good so they feel a higher "jolt" could be tolerated. We hope our dear little Marin gets through these next five days with ease. Keep those prayers in her favor.

We continue to settle in here in Seattle. Lots of boxes and frustration with not being able to find anything is keeping us pressing forward with unpacking, slowly but surely. Marin and I truely miss our support system there in Atlanta. We feel the support from all over the globe and that's what keeps us plugging forward. We can't wait to meet our Okinawa swim mom over the Christmas holiday! How cool is that. Anyone who wants to see how beautiful Seattle is, please come knock on our doors. We love visitors, and can accomodate anyone!

Our thoughts and prayers have each and everyone of you in them nightly and we appreciate you for keeping us in yours.

A big hug to our ciber family,

Marin, Nancy, Matt, Cami, Grandma Sharron, and Mike!


Wednesday, November 16, 2005 0:43 AM CST


*Please note the corrected new home phone number with our address below. Our home number in WA is (425)657-0041.

Tuesday was kind of a tough day for Marin. She just never seemed to really wake up. We've had days like these from time to time and it's both alarming and frustrating. Despite the slow tempo, she went through another full day of home rehab without complaint. It's hard for her to see the progress, but she's definitely getting stronger as her grandma pointed out when she remarked how well Marin is getting around all by herself.

The high point was either Grandma Sharon's eggplant parmesan for dinner, or a phone call from her dear friend Jordan back in Atlanta. Marin lit up with excitement and was speaking very well over the telephone... I think she just does much better with her speech when she's not thinking about what to say, rather simply carrying on a conversation. Often these visits with friends over the phone leaves Marin a little sad afterword, but speaking with Jordan was all very positive for Marin. She's making the transition very well.

Please pray hard for a positive result as we undertake an MRI Wednesday. We'll keep you updated on what we find out.

Much love,

~The Morrison family


Tuesday, November 15, 2005 1:36 AM CST


*Pleas note the corrected new home phone number with our address below. Our home number in WA is (425)657-0041.

Sunshine in November in the Pacific Northwest is a wonderful thing. When Marin's brother Michael wakes up and sees the sun coming in through his bedroom window he proclaims it a 'happy day'. Monday was a happy day here as Marin got the week started with sessions from four different therapists. The program called 'Rehab without Walls' appears to be working very well for us. The therapists work with Marin in our home for several hours during the day and her enthusiasm to improve is shining through. Marin also had a nice surprise around dinner time as her rehab buddy Staphanie called from the Ronald McDonald House in Atlanta. It was precious to hear her in conversation with her good friend who's going through precisely the same struggles. The occupational therapist who was here at the time remarked how well Marin was speaking when she was simply having a social conversation. Hearing from friends is special and it really cheers her up, just as reading her guestbook here always brings a smile to her face.

On Wednesday we're scheduled for an oncology appointement and an MRI. Some strong prayers between now and then certainly would do some good. We don't expect to learn a great deal this week, but we're hoping for the best. In the meantime, we're filling the garage with empty boxes as Nancy's energy is turning a house into a home. Enjoy everyday and take stock in your blessings.

Under lots of stars,

Marin, Nancy, Matt, Cami and Mike



Sunday, November 13, 2005 3:31 PM CST

*Pleas note the corrected new home phone number with our address below. Our home number in WA is (425)657-0041.

Hi everyone, it's been an eventful weekend so pardon the sporadic updates. Friday we spent the Veteran's Day holiday in downtown Seattle taking in some of what the city has to offer. We visited the Pacific Science Museum where Marin was mostly on her feet walking through the fun and very family-friendly exhibits. She especially enjoyed the butterfly house where several species of exotic butterflies and moths swarmed around us as we walked through. We also took in the IMAX movie "Walking on the Moon" (very cool!) and generally enjoyed a stress-free holiday afternoon with the whole family (something we needed very badly).

Later Friday we learned that our insurance cleared rehab services for Marin so we scheduled appointments to begin right away. Sometimes still a bit disheartened, Marin is nevertheless very determined and enthusiastic about her work to get better. She worked with a physical therapist and speech therapist from 'Rehab Without Walls', an organization that provides services at home or in the community. Today Marin is working with an occupational therapist here at the house and so far we've been very impressed with the program. Again, Marin's determination shines through.

We have to thank some good friends and neighbors for their help in getting us through the last week. The Shea family has been amazing in helping us get our house in order, giving up their entire Saturday to help us unpack boxes... over and above the call of duty and we are truly thankful for the help. The Smalls' family cooked us an array of wonderful meals and stacked our freezer for easy eating... thanks Joe & Lori! Also a night out with the Sinatro's helped us reconnect outside the stress of everything that's been going on. We appreciate all the well wishes from everyone on this web site and Marin really looks forward to hearing the entries that we read to her every night. Lots of people have mentioned that she has inspired them, but I can tell you that Marins feels very inspired by the messages she receives and it's been an extremely important form of emotional therapy for all of us. Thank you all and thank you Caring Bridge.

Enjoy the rest of your weekend,

Marin, Nancy, Matt, Cami & Spidey


Friday, November 11, 2005 10:57 AM CST

*Pleas note the corrected new home phone number with our address below. Our home number in WA is (425)657-0041.

Settling in to our new situation has been difficult as Marin's rehab plan is just coming together. She'll be starting an in-home program beginning this weekend. She hasn't been lagging though... Mom and Dad have been working with her on a daily schedeule.

Thursday we had a visit from a girl in the neighborhood who stopped by to meet Marin. She's about the same age, recently moved in and was looking to make a friend. It was nice for Marin to have a visitor and they seemed to hit it off. We played UNO attack and had a nice visit. The neighbors in general have been very kind and slowly but surely Nancy's getting to know some of the ladies on the street. It makes settling in a little easier in such an overwhelming situation.

Today the kids are out of school and we're planning a family outing downtown. We hope you all are enjoying your family today and honoring the veterans who've sacraficed for our freedom. Have a great weekend.

~The Morrison family


Thursday, November 10, 2005 1:42 AM CST

A good example of what a friendly greeting and encouraging word can do arrived this afternoon in a phone call for Marin. On the other end of the line was coach Chris Davis from Swim Atlanta calling just to say hi, see how she's doing, and connect us with a friend that lives in the area. The smile that was on her face while she spoke to Chris and the tears she wept after saying goodbye were each depths of emotion that reminded Marin how really alive she is in any given hour of any day. Sometimes it's difficult to appreciate your life in the midst of adversity, but there is almost always something positive to be harvested. In this case, it's good friendship.

We appear to be gaining some momentum in our struggle for rehab services. Nancy and I met with hospital administrators today and came away with a better feeling that they're on the same page and willing to be more helpful in arranging the proper therapy for Marin. We also met with a teacher from the school district who will be working with Marin at home until she's able to attend classes, which will be quite a while. In the meantime, Mom and Dad have been serving as therapists and Marin is giving her usual terrific effort as positive results continue to trickle in. Please continue praying for her and the right arm in particular. We'll have more on her progress tomorrow.

Have a great Thursday!

~The Morrison family, Marin, Nancy, Matt, Cami and Spidey


Wednesday, November 9, 2005 1:50 AM CST


Wow! I'm floored by the fact that this website needed an entire new guestbook entry page to host everyone who's been contributing well-wishes to Marin. It's an amazing feeling to know so many people are offering their love and concern, hopes and prayers, all for the sake of our darling little girl.

Marin had a good day Tuesday. We met with a rep from Rehab without Walls in the morning and felt encouraged about the type of program that she outlined. As Nancy wrote yesterday we've been kicking up quite a bit of dust in order to get Marin the services she needs and people seem to be responding. In the early afternoon, Nancy took Marin swimming at a local health club and while this normally puts a big charge in her, Marin was feeling forlorn about her physical limitations in the pool. No complaints but it was clear she was sad. Later in day, I took Cami to the local USA swim club for a workout and I could relate to how Marin was feeling when I looked up on the records board and saw that Marin would hold many of the club records in the freestyle sprints in several age group categories. My message to Marin on a day like this is to recognize the past not for what you had that was lost, but rather as inspiration to overcome and regain what we know is inside her. She's already shown great faith and perseverence and there's no question she's getting better as the hand of the Lord is on her shoulder.

Thanks for being there for us.

~Marin, Nancy, Matt, Cami & Spidey


Tuesday, November 8, 2005 0:52 AM CST

Good Evening friends and family,

Yes, I am alive, and have been intently reading your heartfelt messages, yet have been unable to write. I always pride myself on being valient, able to roll with the tide, and have found myself under the surf and unable to surface. I'm glad that all my passion for life has rubbed off on my awesome children and they have handled the move like champs. Cami and Michael remain their happy, energetic selves, excited what each new day will bring. Marin also has been positive and loves being together as a family.

After arriving at our new house and sitting in a corner crying about it, I then turned my focus on Marin's new care. I was highly upset, stating it mildly, when that seemed to be falling apart at every turn. Today, however, after many phone calls, things are starting to look up. It's interesting but this morning, when we all were sitting in the kitchen, Marin said to look out the window. There was the most incredable rainbow spanning way across the sky in a huge, glorious ark. It helped me remember that God is out there.

We have continued to try to find a rehab facility that will benefit Marin. Today we went to Belleview Hospital and liked the therapist better that anything we've seen so far. Tomorrow a company called "rehab without walls" is coming to the house for therapy and we willl interview and evaluate them at this time. We received a call from the head rehab doc at Childrens Healthcare of Seattle and he wants to schedule an appointment with Matt and I on Wednesday. I think our various calls to docs here and in Atlanta got their attention on how upset we have been regarding the urgency of Marin's care.

I am hoping I can get Marin in the pool tomorrow. She needs to swim as much as she needs to breathe. It would be nice to get down to meet the coach at King Aquatics in anticipation for her to return to a team. Marin misses her swim family and friends. Her patience is more than I could ever handle myself. She remains positive and pressing forward each and everyday. I must admit she now has been the one only allowing a 10 minute cry session per day. (I definately have been sneaking in more time than that.) I know this has to get easier; one breath at a time, one step at a time, one stroke at a time. I just want my darling to get better. Prayer, patience, and your support will get us there.

Thanks to each and everyone of you for checking in on Marin's page. She's proving to be much greater than any champion I've ever met.

Finally coming up for air,

Nancy, MARIN, Matt, Cami, and Spiderman


Monday, November 7, 2005 0:41 AM CST


A much better Sunday to finish off a bit of a rough weekend. Marin became ill again Saturday night but slept late Sunday morning and felt better all day. We went to church as a family for the first time in several weeks and it was nice, although I think we'll shop around before settling on a permanent place of worship. Some friends in the area stopped by to welcome us to the area with some nice goody baskets, and we reciprocated with a tour of our box-filled house.

Still trying to get her rehab situation in order, Marin was eager to get some work done today and she did a good job of physical therapy with help from Nancy and Matt. All the prayers directed toward her right arm are paying off as Marin has been able to pull her hand up to her shoulder with increasing frequency (like a 'curl' in the weightroom). This is something she was unable to do just a few days ago, but is now able to get it done multiple times a day. We're overjoyed to see this type of improvement, even as slowly as it is developing. Please continue your prayer support and include a word regarding her rehab program... we need the help over the next couple days for both Marin AND Nancy.

Aftr dinner everyone joined in for a big game of UNO Attack! and it was wonderful to be all be together on a Sunday night. Here's to a positive week ahead!

Cheers,

Marin, Nancy, Matt, Cami, Mike & Grandma Sharon


Saturday, November 5, 2005 5:04 PM CST


Happy weekend... We hope you're enjoying your Saturday wherever you are. After a tough week of transition, Marin was inspired to work this morning and she did a good bit of 'homework' after breakfast. After some stretching, physical and speech exercises, she became dizzy and needed some couch time. After a little nap and lunch she felt much better. Nancy, Cami and Mike went out for supplies, and returned with a number of good games like Uno and Scrabble. Yahtzee! was given to us in a care package from Uncle Kelly and Aunt Barb that also included a number of cool items including a harmonica that Marin is really enjoying. The games are a great source of cognitive and speech therapy.

We're still sorting through our rehab options and are more than a little frustrated... we're determined to get Marin the work she needs. Hopefully we'll be settling the situation early next week. On a positive note, having everyone together has been a big lift, especially Cami and Mike being around Marin. It's amazing how helpful the younger siblings have been, and the 'Little Man' is really stepping up to help his big sis feel better. He's always willing to play games with Marin, help her play the harmonica, and dance around the kitchen if it'll bring a smile to our faces.

Please keep Marin in your prayers as she continues to work hard to get better. Have a great weekend!

Soaking in Seattle,

~The Morrison family


Friday, November 4, 2005 3:01 AM CST


Hi Everybody,

Another day of transition as Marin, Mom and Dad visited her new high school to get registered even though she won't be attending for some time. In order to get the education portion of her rehab started, she has to be enrolled to begin receiving special services. We were happy to learn that the school district does have a number of speech, physical, and occupational therapy programs so this will definitely benefit Marin. We will also be doing outpatient programs through Children's hospital. We learned that Marin's counselor at school is our neighbor on the street and she has a daughter Cami's age... so Cami and Nancy made their first new friends today.

Marin has been doing her best to keep a positive attitude but her situation is frustrating for her. In addition to her slow to recover right arm and leg, she's feeling bloated due to the steroids she's been taking and her hair loss had been discouraging to her... but today she got a nice lift when the shoulder length wig she ordered arrived. It looks great! It's pretty close to the style she normally wears her hair, with a touch of red to bring out her wild side! And it seems to be comfartable for her too. Lookin' good Marin!

We're happy to have Grandma Sharon in town to help with the transition. She arrived safely from Napa, CA tonight.

Sleepy in Seattle,

~The Morrison family


Wednesday, November 2, 2005 11:13 PM CST


It appears the transition to Seattle will be a little rough in the rehab department. We went through an entire day of evaluation by physical, occupational, speech and education therapists at Seattle Children's Hospital and in the end we're still uncertain where Marin will be going for her extremely important therapy. Unlike Atlanta, the hospital here does not have a comprehensive outpatient program. Therefore, Marin will be directed to private clinics in the community, and because we haven't learned where the best facilities for her are yet, we are rather frustrated. Marin remains inspired to work hard, but right now we're in a holding pattern. We will change that quickly, but Marin and Nancy are a bit unsettled. I'm sure we'll have good therapy treatment lined up quickly.

We also had a session with the neuro-oncologist who is handling Marin's case. She's due for an MRI scan in a couple of weeks to assess how the radiation therapy worked. Please continue to pray for a positive result. As usual, Marin's spirit remains high.

A special thanks to Uncle Bruce C. who was in Seattle and entertained Cami and Mike for the afternoon while Mom, Dad, and Marin went through the rigamaroll (I've never actually written that word before now... how's it look?). Thursday it's school registration and more unpacking!! Enjoy your day wherever you are.

Settling in Seattle,

~The Morrison family


Tuesday, November 1, 2005 11:31 PM CST


Reunited... and it feels so good! From Atlanta to Seattle, Marin's journey is entering a new stage. Nancy and the children arrived in the Pacific Northwest Tuesday where I have been hurrying preperations for their arrival. The trip went smooth and comfortably, thanks to some terrific travel arrangements courtesy of my Uncle Mike (thank you!) Marin travelled like a champ, as did Cami, Michael and Nancy. No small feat as Michael flew as much on his Halloween candy sugar high as he did on Delta jet fuel.

Once upon arrival, we drove to our new home in Sammamish where Nancy was seeing the house for the first time. A daunting introduction, as she needed to take a long look beyond the stacks of unpacked boxes to size up her new nest. By the end of the day, with a solemn promise from me to be the primary unpacker, I think she was warming up to the place. The kids, of course, were instantly excited about the new 'crib'.

With only a few hours of introduction, it's back to the business of getting Marin better. Wednesday we have all day appointments with the rehabilitation and neuro oncology teams at Seattle Children's Hospital. We're very optimistic that this facility and group of professionals will give Marin the an excellent opportunity for her very best recovery.

It's scary taking this leap so far away from our wonderful network of friends supporting us in Atlanta, but in cyberspace, we're only a click away. Already we're starting to feel some great community support here. We'll keep you updated on the events of tomorrow.

All the best,

Matt, Nancy, Marin, Cami and Mike


Monday, October 31, 2005 7:12 PM CST

Yes, we are still alive, and Happy Halloween! Sorry I haven't updated in three days! My computer is packed in my van on the way to Seattle, I couldn't figure out how to work melissa's, and Marin and I were extremely anxious to read all your entries!

Since Friday night, we have basically been adjusting to the real world outside of Ronald McDonald House. It has been a hard, but necessary, transition. Saturday Marin and I moved out of RMH. We stopped at a Rehab reunion for the fourth floor of the hospital. It was inspiring to Marin to see kids that have been out a while and are doing so well. We were once again very encouraged.

After that party, we headed out to the Rutledge home where Cami and Mike have been staying and started putting our stuff together. A friend of Marin's, Haley S., mom came over and helped Marin with some therapy and showed us a lot of exercises to do with her arm. Marin is so determined and is excited with some "new moves." I must say that we are feeling excitement moving to a new rehab center to get even more moves. I think doing a lot of different things will help facilitate movement even more.

Sunday we had a relaxing day with more packing. There was a little suprise party for my daughter Cami for leaving. Marin and a couple of her friends were involved also. It is always great to see people you care about!!

Monday was our final day of getting ready. Marin and I had numerous doctors apts. as they wanted to see Marin one last time before leaving. Christy, my physical therapist friend, once again met with Marin and this time she took her swimming. Wow, what a wonderful person. Marin enjoyed being in the water, as all you swimmers know!!

Tonight Marin passed out candy while I took Michael to a few houses to collect candy. We saw great costumes this year.

Tomorrow we take off on our new adventure to Seattle. As the time approaches, we are trying to be optomistic about the move. Our focus is on Marin so all this seems so uneventful even though moving across the US is! We continue to pray hard for Marin and her complete healing and love for you to continue with your prayers. My strong little Marin is riding out the toughest times like a champ.

God is good.
Airplane dreams,
Marin and mom Nancy


Friday, October 28, 2005 9:21 PM CDT

Yea, it's Friday. We continue to have good days. Marin had her last day at Rehab at Scottish-Rite. She worked really hard and is excited to be able to spend a few days working on her own to see what she can do. At the end of Rehab, they had a little graduation ceremony for Marin. It was hard for her to say goodbye. Many of these kids have been there with Marin since the hospital and they have gone through so much together. Marin and her friend Stephanie hugged and cried for about 20 minutes. They have made a bond for life. They knew this day would come eventually but it doesn't make it any easier.

After rehab we went to see Aunt Eileen's new house. They live in a downtown area of Atlanta. Instead of adding on their old house, they tore it down and built a bran new one. Marin and I walked all three floors. It made us pretty excited to go see our new home. Matt, Marin's dad, thinks it's really cool so we can't wait to see what dad thinks is "Cool!"

Marin's stength and positive attitude continues to improve daily. Today she got into the car, for the first time, lifting her own right leg in without my help. She isn't so hesitant to go out in public now. As hard as it is, she is accepting her situation and hopes that her positive attitude and determination will help others who are delt with great challanges. She really is truely amazing!

Tomorrow we plan to move out of RMH. We then have to gather up all our stuff spread out all over Atlanta and figure out how we are going to get it all to Seattle. Monday Marin has doc appointments in the morning. The docs want to see her one last time before we make the big move. Of course we will squeeze in a time or two to swim!!

THANK YOU FOR YOU WONDERFUL SUPPORT!!. We more than appreicate every card, gift, message, and prayer. You are the wind beneath our wings.

Ronald McDonald Blues,
Marin and Mom Nancy


Thursday, October 27, 2005 9:11 PM CDT

Hi!! Just to let those of you know who read yesterday's journal, that smoke detector continued going off till almost 1:00a.m. when finally someone showed up to fix it. Suprisingly, Marin slept through most of it. While we were in the hospital, a girl was next to us who moaned all night. After the second night, the nurses brought Marin some earplugs. She put those in last night and, wha-la, off to sleep she went.

Marin's strength continues to grow. She has very little hamstring strength so this has been a focus on her leg for the last few days. Marin has been smiling through a lot of therapy in the last few days as well. I believe she is seeing progress more stedily now than in the past. The therapist gave us some exercises to do on the plane next week as well as stuff to do until she transitions to the rehap in Seattle.

After therapy today, a mom from Swim Atlanta, Christy S., came over to RMH and rigged up a kick board that would hold Marin's arm on it while swimming. She is a physical therapist. Her insight was wonderful!! Once again, God has blessed us with so many wonderful people!!

Most of the kids at day rehab go home for the weekend so this is the last night Marin, Stephanie, and Aaron got to hang out. We went to Longhorn Steakhouse. I know this friendship between Marin and Stephanie is going to be hard on both of them when we leave. I think they will remain life-long friends as they went through this incredible trauma together. I am so thankful for friends.

Marin's continued progress leads me to believe that my little darling is on her rode to recovery. Prayer works. Marin's tumor is going to be gone!! One thing she has never been afraid of is hard work; in the pool and at school. She enjoys a challange. She has never quit on anything until she has seen success. I truely love that wonderful girl and I completely understand why she has touched so many hearts. I just follow behind and I'm there for an extra hand, or foot, if she needs it.

Always a swim mom,
Nancy

Getting stronger,
Marin


Wednesday, October 26, 2005 9:51 PM CDT

Hi! The computer here at RMH has become a popular item over the last few days. There isn't wireless axcess so I've been having to wait until I can jump on it which has been really late.

Marin had a fabulous day. She worked hard in therapy and didn't seem to get tired at all during it. I can't explain why, but I continue to be really worried about Marin's arm. The longer it takes for recovery, the less chance of total return. It doesn't seem like the rehab facility here in Atlanta has focused on working it that much. Perhaps the Seattle rehab facility will work wonders for it.

After rehab, Marin and I went to Swim Atlanta to see Coach Chris one more time and her team mates. We sat and watched their practice for about an hour. Marin enjoyed it a lot and I feel made good closure for now. We have plans to come back several times within the next year so it's not like we're going away forever.

The Ronald Mc House had a pumpkin decorating party this evening. It was pretty cute. After that Marin, her buddies Stephanie and Aaron watched the movie "A Diary of a Mad Black Woman." We had a few more laughs to finish off the day.

(The smoke detector keeps going off here at RMH. It is really loud!!!!) Sorry for the disruption, but I am going to end.

Sweet dreams,
Marin and mom Nancy


Tuesday, October 25, 2005 10:16 PM CDT

It's late. I have been talking with all the ladies here at the Ronald McDonald House. I guess now we know we are leaving, I want to spend as much time with people as possible. Stephanie (marin's friend) and her mom are wonderful people and I know we will miss them. Marin and Stephanie look out for eachother everyday. I'm sure Marin will meet new friends in Seattle but she is scared about the transition.

Today Marin continued to get significantly stronger. She didn't get dizzy or tired at rehab all day, although she still got her nap that I had them build into her day. The docs did a cognative evaluation and in this area, she has very far to go. Marin has what they call aphasia. She understands what is being said, but when trying to respond, everything gets jumbled up. They said her visual learning field is very She was quite discouraged that she was able to only do a few things that they tested her on. Baby steps. This evening, we played Uno with several others here. Marin enjoys playing cards and other games.

This evening Marin was very excited. She pulled her leg all the way up to her chest while lying down. (like a tuck). This is the movement she has been working on so she could do a flip-turn in the water. Her foot is not strong enough to push off the wall, that will probably take quite a while, but we are very encouraged that it will all come back.

It was a long day and I am pretty sleepy. I hope everyone has a great night and a wonderful day tomorrow. I feel a wonderful peace this evening. My prayers are for each and everyone of you along with my little Marin.

Swimmingly dreams,
Marin and mom Nancy


Tuesday, October 25, 2005 10:16 PM CDT

It's late. I have been talking with all the ladies here at the Ronald McDonald House. I guess now we know we are leaving, I want to spend as much time with people as possible. Stephanie (marin's friend) and her mom are wonderful people and I know we will miss them. Marin and Stephanie look out for eachother everyday. I'm sure Marin will meet new friends in Seattle but she is scared about the transition.

Today Marin continued to get significantly stronger. She didn't get dizzy or tired at rehab all day, although she still got her nap that I had them build into her day. The docs did a cognative evaluation and in this area, she has very far to go. Marin has what they call aphasia. She understands what is being said, but when trying to respond, everything gets jumbled up. They said her visual learning field is very She was quite discouraged that she was able to only do a few things that they tested her on. Baby steps. This evening, we played Uno with several others here. Marin enjoys playing cards and other games.

This evening Marin was very excited. She pulled her leg all the way up to her chest while lying down. (like a tuck). This is the movement she has been working on so she could do a flip-turn in the water. Her foot is not strong enough to push off the wall, that will probably take quite a while, but we are very encouraged that it will all come back.

It was a long day and I am pretty sleepy. I hope everyone has a great night and a wonderful day tomorrow. I feel a wonderful peace this evening. My prayers are for each and everyone of you along with my little Marin.

Swimmingly dreams,
Marin and mom Nancy


Tuesday, October 25, 2005 10:16 PM CDT

It's late. I have been talking with all the ladies here at the Ronald McDonald House. I guess now we know we are leaving, I want to spend as much time with people as possible. Stephanie (marin's friend) and her mom are wonderful people and I know we will miss them. Marin and Stephanie look out for eachother everyday. I'm sure Marin will meet new friends in Seattle but she is scared about the transition.

Today Marin continued to get significantly stronger. She didn't get dizzy or tired at rehab all day, although she still got her nap that I had them build into her day. The docs did a cognative evaluation and in this area, she has very far to go. Marin has what they call aphasia. She understands what is being said, but when trying to respond, everything gets jumbled up. They said her visual learning field is very She was quite discouraged that she was able to only do a few things that they tested her on. Baby steps. This evening, we played Uno with several others here. Marin enjoys playing cards and other games.

This evening Marin was very excited. She pulled her leg all the way up to her chest while lying down. (like a tuck). This is the movement she has been working on so she could do a flip-turn in the water. Her foot is not strong enough to push off the wall, that will probably take quite a while, but we are very encouraged that it will all come back.

It was a long day and I am pretty sleepy. I hope everyone has a great night and a wonderful day tomorrow. I feel a wonderful peace this evening. My prayers are for each and everyone of you along with my little Marin.

Swimmingly dreams,
Marin and mom Nancy


Monday, October 24, 2005 9:19 PM CDT

Happy Monday!!

Thank you so much for the support in our move across the country. I can't express to the swimming community how you have eased the move in supporting us where ever we are. We will be making pretty frequent trips back to Atlanta for swim meets, doc visits, etc so those of you in Atlanta, you're not totally getting rid of us. Thanks to those who said they have contacts in Seattle. When you are moving somewhere and don't know a sole, contacts are great!

Marin had a wonderful day today. She remained up-beat, positive, and worked very hard. This proves my point that we need to keep busy every day. My mom always said that the more you keep your kids busy, the better people they become and they don't have time to get in trouble either. Marin has always been used to a busy, fast-paced schedule.

Today I didn't hold onto Marin when she walked. She seems a lot more stable on her feet. She still is a little dizzy but it didn't prevent her from doing her rehab today.

For dinner we went out for Italian with another young lady and her mom from the Ronald McDonald House. It was fun. Just being out in the community gives us a little feeling of normalicy. It's nice to escape lifes crises and just enjoy ourselves. Marin feels the same way when she is in the water. She can move around without feeling like everyone is staring at her.

I know she will move past this feeling of wanting to hide, she will realize that people will still want to be her friend. She really does have so much to offer. I can only imagine the feeling of being able to function and excel in the community and then, boom, have the rug pulled out from underneath you.

We received some really special gifts today with a poster signed by a swim team, a beautiful angel, and some encouraging cards. Our gratitude is more than words can express!

May your day tomorrow be filled with successful events and continue to help me pray for Marin's complete recovery.

Good night, sleep tight, and don't let the bed bugs bite!!

Big hugs, Marin and mom nancy



I


Sunday, October 23, 2005 9:41 PM CDT

I just did a long update, pushed a button, and zap, my entry dissapeared. Well, back to the drawing board.

We are comfortably settled back in at the Ronald McDonald house. We had a nice weekend. It's hard for Marin to go back to our neighborhood and see her friends and family. She acts humiliated. I keep encouraging her not to do this but I know it's hard. She pushed really hard for more than that 10 minutes of crying per day. I gave her a little slack this time.

Today was fun. We went to see some of Matt's cousins. Cousin Michelle made this wonderful soup for Marin, cousin Mary crocheted Marin some adorable hats, and we got to visit with everyone.

This brings me to my next topic. I haven't really talked about this on the web-site because I wasn't sure what we were going to do. Marin's dad Matt took a job several months ago in Seattle, WA. Because of what's happened to Marin, Matt wants us all together as a family. Kicking and screaming, we are going to make the move next week to Seattle, WA. Matt assures us they have a wonderful rehab facility, including a POOL! The oncologist she is going to have is very renouned in the US and they have a world renouned cancer facility. We are planning to come back to Atlanta for the summer next year so Marin can swim with Coach Chris and her friends.

Marin's arm continues to show very little improvement. When swimming on Saturday, apparently she was swimming to close to the lane rope on her right side. Today she has a huge rub burn and bruise on the right elbow. I was swimming on her opposite side and wasn't aware of it. I guess next time we'll both have to pay more attention to the arm!! Keep the arm in your prayers.

Thank you to all of you who sent cards, gifts, and messages this weekend. Marin's motivation is holding onto each message, card, gift, and PRAYERS. We are in awe of how many wonderful people there are in this world. Marin and I appreciate you all!!

We got to watch our show tonight, "Desperate Housewives." We have practically the whole Ronald McDonald house watching it now. Crazy but fun!

Loudest swimming mom,
Nancy

the swimmer,
Marin


Sunday, October 23, 2005 0:10 AM CDT

Hi! Here's a weekend update starting from Friday morning:

Marin went to rehab and did pretty well. She did get a little dizzy and layed down for about an hour, which went she got up felt much better. I picked Marin up from rehab at 3:00p.m. and we went up to hang out with Cami and Mike. Actually, Cami went to the mountains with her friends so Marin, Mike, and I have been hanging out all weekend.

On Friday night we watched a few movies, went to sleep and Marin slept till about 10:00a.m. For a swimmer, that is pure luxury.

Saturday has been great. We leisurely ate breakfast, played some games, went to Zaxby's for lunch, then headed over to a pool to swim. Today we didn't even start out with any floatation belts on. Marin felt good in the water and we swam several laps. She did try a flip-turn several times but she can't voluntarily bend her right knee so it made the flip-turn nearly impossible. I'm getting pretty excited about getting to swim laps now. I have never been a great swimmer, although I love the sport. Perhaps starting to train with Marin will help me. She certainly motivates you when your swimming next to her.

Marin doesn't see how far she has come since August 15th. It's hard telling your 15 yr. old athlete that life is different now. The great thing is she's still a great swimmer! If her right arm recovers a lot slower than she desires, she can swim in the para-olympics. She's having a hard time seeing that she can still compete and do well. Looking forward, not backward, is where she is starting to focus. That is good. She's being a little more comfortable with people seeing her and because of her progress this far, I see she's encouraged that a lot more improvement is yet to come.


Keep those prayers and good thoughts funneling Marin's way. Mark Henderson sent Marin the most incredible t-shirt which I have to share with all of you. It is signed by USA athletes that have all won medals in the olympics or world games. It covers a wide vass of sports. It left Marin speachless.

Thank you to all of you.

chlorine-smelling ladies,

Marin and mom Nancy


Saturday, October 22, 2005 9:55 PM CDT

Hi!! First, I want to appologize about no update yesterday. Matt said he would do it and I noticed that he didn't. I really missed updating anyway but I was having computer problems.

Starting from Friday morning:

Marin went to rehap and did pretty well. She did get a little dizzy and layed down for about an hour, which went she got up felt much better. I picked Marin up from rehap at 3:00p.m. and we went up to hang out with Cami and Mike. Actually, Cami went to the mountains with her friends so Marin, Mike, and I have been hanging out all weekend.

On Friday night we watched a few movies, went to sleep and Marin slept till about 10:00a.m. For a swimmer, that is pure luxury.

Saturday has been great. We leisurely ate breakfast, played some games, went to Zaxby's for lunch, then headed over to a pool to swim. Today we didn't even start out with any flotation belts on. Marin felt good in the water and we swam several laps. She did try a flip-turn several times but she can't voluntarily bend her right knee so it made the flip-turn nearly impossible. I'm getting pretty excited about getting to swim laps now. I have never been a great swimmer, although I love the sport. Perhaps starting to train with Marin will help me. She certainly motivates you when your swimming next to her.

Marin doesn't see how far she has come since August 15th. It's hard telling your 15 yr. old athlete that life is different now. The great thing is she's still a great swimmer! If her right arm recovers a lot slower than she desires, she can swim in the para-olympics. She's having a hard time seeing that she can still compete and do well. Looking forward, not backward, is where she is starting to focus. That is good. She's being a little more comfortable with people seeing her and because of her progress this far, I see she's encouraged that a lot more improvement is yet to come.


Keep those prayers and good thoughts funneling Marin's way. Mark Henderson sent Marin the most incredible t-shirt which I have to share with all of you. It is signed by USA athletes that have all won medals in the olympics or world games. It covers a wide vass of sports. It left Marin speachless.

Thank you to all of you.

chlorine-smelling ladies,

Marin and mom Nancy


Thursday, October 20, 2005 2:57 PM CDT

Wow, look at me updating a lot earlier than normally. Actually, This is the first afternoon we have had free since before Marin's surgery. Marin is taking advantage by enjoying a siesta. Marin's energy level improved 100% today. The doc told us that she wouldn't start feeling an increase in energy for at least 14 days. You all know Marin though, she's on a mission, now more than ever!!

Today at rehab Marin experienced a little movement in her ankle. Up until this point her ankle has been so stiff that any movement seemed impossible. We don't feel that anything is impossible anymore.

We also went to the eye doc who looked at her optic nerve. The swollen optic nerve is what made us find out about Marin having a brain tumor. She was experiencing double vision, which lead us to the eye doc, who diagnosed Marin back on February 23rd. Today, however, Marin's optic nerve looked regular and healthy. Her vision also is strong at 20/20. The only problem with her eyes now is the blindness in her perrifial vision to the right in both eyes. We count the good blessings and hope the bad ones improve.

I actually woke up this morning and exercised a little. I purchased a jump rope yesterday and tried it out for about 45 minutes today. A little hint from a trainer, jumping rope is excellent excercise. It's great cardio, as well as working on upper body. It also helps with coordination and balance.

Today is once again a georgous day here in Atlanta. How can you not smile on a day like today.

Smiling here at Ronald McDonald House,

Marin the swimmer and mom the cheerleader


Wednesday, October 19, 2005 7:40 PM CDT

Well, Marin felt a lot better today. I can't believe that the radiation has already left her body. I think she is just so happy to have it over with that it made her smile all day.

She has been drinking the Vanilla gatorade shakes that were sent to her throughout the day and it seems to really help. We had an appointment with the oncologist and looked at the MRI from yesterday. They said the radiation has distorted her brain so much it's really hard to tell anything. The radiologist had a little concern about a certain area but the oncologist didn't seem to worried about it. PRAY THE TUMOR SHRINKS AND GOES AWAY!! Marin also ends her first round of chemo on Friday. There will be a 4 to 5 week break, then another 42 days of chemo, and so on. The plan is to continue this pattern for 2 to 3 years.

We have also decided to order one wig. Marin feels that perhaps she would like to go out without always having a hat on.

I wanted to take this evening and personally thank those of you for your generous contributions to marin's fund. The cost of all this is really scary and we are deeply moved that so many of you care so much as to donate. A lot of you who have donated haven't ever met Marin. Her plan is that when she is better, we will have the chance to meet all of you and personally thank each and everyone of you. Again, thanks so much for caring about our Marin and contributing so that we can continue to persue therapy for her to get as strong as she possibly can. I would love to write thank you notes to everyone but for now, I hope you will accept this as a thank you note.

Here's to great things happening with Marin in the next few months!! We are still fighting strong.

Looking forward to swimming on saturday,

Marin and mom nancy


Tuesday, October 18, 2005 7:40 PM CDT

ONE JOURNEY, DONE!!! Yes, we survived and we have the mask to prove it. The radiation doc let Marin keep her mask. We thought we would paint it wild colors and put it in a box frame. We have renewed hope, courage, and strength. Today was one of the most beautiful days I have ever seen. The skies were blue as the ocean. The temp was perfect. I feel really good about making it through this hurdle. Everyone says that prayer works. Well then, all we can do is rejoice.

Marin and I went out to lunch at a place called etizi's. It's a gourmet store. We had salmon, fresh mozerella cheese with Tomatos and basil, awesome mashed potatoes (not as good as Lashayne's though), and some yummy french bread. We then headed over to the MRI and waited for 2 hours. They did not give us any news on the MRI. I always say no news is good news. The docs don't think they will have anything to report. The radiation makes the brain really swollen. It won't look the same in a month. They took this MRI as a starting point for the follow up ones.

We are now looking forward to Marin getting plenty of rest, building up her strength, and then continuing progressing on with her rehap.

We felt great today. I KNOW it's from all those prayers. Thank you so much for helping us keep the faith. Mary Ellen, the cancer angel is so beautiful. Marin has always been very fond of angels and has a collection. It reminded me of a moment when Marin was coming out of her drug enduced moments from surgery. She was laying on the bed, looking up at the ceiling, smiling and giggling. She then closed her eyes and continued to smile and giggle. A few weeks later she told me that angels visited her after her surgery. She said they were flying aroung above her head singing and playing music. She said then one flew down and wispered to her that it was o.k. for her to close her eyes if she was tired, that she would still be able to see them. She said she did just that and she could. Marin didn't know that I was standing there witnessing this experience. I know there were angels in that ICU room that day. I'm sure they are following her in every step she takes.

Thanks to all of you for being my angels. Hope all had a great day.

#1 swim mom,

Nancy and my champion Marin


Monday, October 17, 2005 10:03 PM CDT

I came across this saying today and it sums up how I am feeling for my dear little Marin.

All this joy, all this sorrow, all this promise, all this pain.
Such is life, such is being, such is spirit, such is love.

We feel all these things every day, to the 10th degree. To watch your child suffer is a feeling that can't be put into words. I'm just standing right by her side, helping her with each step, each stumble, each heartache, and moment of joy. I am an observer, just as you all are, praying as hard as I can for her complete and total healing.

Marin did have a pretty good day today. Yea!! She did wake up tired, made it through rehap 1/2 asleep, and went to her second to last day of radiation. After yawning three times within the first 5 minutes of seeing the radiation doc, he told us to increase Marin's steroids 2 mg. Marin wasn't happy with this but he said he thinks the swelling from the radiation is giving her pressure which is making her sleepy. He also gave her a B12 shot.

She was feeling good at night, ate a good dinner, and watched a movie while we did some stretching. They took the cast off today and her leg is still shaking A LOT. It is very frustrating. I wish they could do something that would help her more. They have tried different things without much success. I guess prayers the last answer! (Keep that arm in mind as well!) While we're praying, pray that the radiation has worked and Marin can be added in the near distant future as a cancer survivor.

Tomorrow we are taking the day off from rehab. We are going to radiation and to get an MRI.

I don't know what we would do without all of you and your wonderful support. Everyone is amazing. Thanks to our Okinowa swim mom for always keeping us in her prayers way over in Japan! Prayers all the way across the ocean, you gotta love that!!

Have a happy Tuesday, you KNOW that Marin will.

Fighting hard and strong,

marin and mom nancy


Sunday, October 16, 2005 9:19 PM CDT

O.K., we have set up a plan. From now on, Marin and I get ten minutes a day to cry, be mad, scream, whatever. Then the warriors have to pull it together and focus on finishing on top. We really haven't needed this until now (well, Marin hasn't anyway!). I think all the drugs, including the vertego medicine which is like valume, has made marin a little emotional.

We had an on again, off again day. Marin's dizziness seems to be a little better but she feels a little druged now. She did fall once today standing up from the table. We just stayed at the Ronald McDonald House all day. Marin's friend Jordan came and visited. She brought us lunch, and played some games with Marin. Games are good for her mental stimulation. After Jordan left, Clare Keller came with Cami and Mike. I got in my 100 kisses from Mike for the week. Cami let me have one. We ended the day with our show, "Desperate Housewives."

Marin was smiling when she went to bed. We sat and I read quite a few of your journal entries to her. Some even that we have already read. It pumps us up for the week. She was smiling, and feeling really good.

Hope all had a great weekend.

Much love from us,

Marin and Nancy


Saturday, October 15, 2005 10:10 PM CDT

Good evening,

Another day of hanging out. I called the doc this morning regarding Marin's vertigo. The doc called marin in a scrip at the Wallgreens close to our old house. My friend Anne was bringing Cami and Michael down to RMH to visit us so she picked up the scrip on the way. Marin slept most of the day until they showed up at around 3:00.

I think Marin really enjoyed hanging out with her sis and brother. It was fun for me to hang out with Anne also. Marin didn't feel all that great but they definately brought her some smiles.

We were so very touched by the article written by Jessica Muller. I can't tell you how special this made Marin feel. We hang onto each and every encouraging word that is sent.

It's amazing, but I feel just as tired as Marin. Perhaps all those radiation treatments are seeping through the walls at the office. We're searching for that light at the end of the tunnel, or like Matthew said, just around the bend. Keeping positive and driven is what I need to keep focused on. I need to feed Marin as much of this as possible. We're working hard.

Hanging in there,

Marin and mom Nancy


Friday, October 14, 2005 9:21 PM CDT

Here's the link to the 11alive news story with Marin & Nancy:
http://www.11alive.com/video/player.aspx?aid=45086&sid=70447&bw=&cid=51pam

Friday has come. We're not rejoicing, but we're not crying either. We're just hanging out. Marin woke up and the room was still spinning. Today we didn't even attempt to go to day rehab. Marin rested, and I snuck food into our room for her (no food is allowed in the RMH rooms). I figured she needed to eat. We watched a few movies, took several naps, and went to radiation. Everyone at radiation is so nice. They really pump Marin up with how much she has improved since the first day we walked in there. She really has improved. It's just so hard when the improvements are so small. Marin wants so badly to be back to normal. She wants to swim and hang out with her friends. She wants to carry on a conversation with someone. I want that so badly for her too. If there was any thing I could do to ease her pain, I would.

I remember when I said that first surgery, back on March 4th, was the worst day of my life. I had no idea what was ahead of me, just like I don't know now. From that day back in March, up till now, I have learned to think of life in a whole new way. I focus on every positive moment of every day. I will never again say an entire day is bad. I will always find something to smile about.

Today Marin and I had a lot of smiles in our day. The most joyous thing today is that Marin said she can feel her right leg! Up until this point, she has been going through the motions but couldn't "feel" the leg. A mile stone in our world. I know she will be strong again and in a month the radiation will be wearing off and I think miraculous things will happen. Until then, baby steps, moments of joy, and lots of prayers are what we go on.

Swimming won't be happening this weekend because she still has a cast on her leg. Thats o.k., we're building up for next week. Both her and I can't wait to get into the water again. All you swimmers, keep swimming for Marin. Work as hard as she did in that water. Keep yourselves strong because Marin will be back, so watch out!

Happy weekend to all,

Marin and mom Nancy


Thursday, October 13, 2005 7:07 PM CDT

Here's the link to the 11alive news story with Marin & Nancy:
http://www.11alive.com/video/player.aspx?aid=45086&sid=70447&bw=&cid=51pam


O.K., I think the signs of radiation have definately sunk in. Marin was fine for a few hours in the morning and, once again, got really dizzy. The radiation doc said he thinks Marin has vertigo. She made it through 1/2 of therapy, had a great sushi lunch which Chris Owens brought, and then was feeling sick the rest of the day. After radiation, she slept until 8:00p.m.

I keep reminding Marin this is one of the lowest points she will experience. She's dizzy, 1/2 her hair has fallen out, her body and vision are weak, and she just wants to get better.

All in all, Marin's spirits remain good. She doesn't appear to be sad. Of course she's having moments of sadness, but over all, she's content.

She's up for the fight, A LOT of it because of all of your support. Please continue to pray for healing. My little girl certainly deserves it. We're hanging out now watching "The Wedding Singer." How can you not laugh at some parts in that movie!

Life is so precious. We are appreciating every moment we have with each other. Looking forward to the weekend. If anything, just so Marin can sleep all day.

A big hug and thanks,

Marin and mom nancy


Wednesday, October 12, 2005 7:50 PM CDT

Hi! Today we were now told that Marin has only 4 more days of radiation. I think all the treatments have really caught up with her. She woke up tired, got dizzy at about noon (she didn't get sick though!), and slept in between our oncology apt. and radiation. She then slept all the way back home and continued sleeping in the car till about 5:30 p.m.

The RMH brought in Boston Market food tonight. It was really good. Marin and I bypassed the ice-cream cake afterwards in fear of our increasing waist-lines.

I don't know why but shower time for Marin has become awful. She does great at bathing herself, it's how upset she seems to get in the shower. Tonight we decided to sing the abc's. The speech therapist said that singing would help Marin get her words out. Well, Marin couldn't sing that darn abc song. You can ONLY imagine her frustration. She said, "My 3 yr. old brother can talk better than me!" I would just eliminate the shower completely out of our day but I don't think any of the therapist or the Ronald McDonald people would like us much!

I discovered another resource that may help Marin. This one has to do with her vision. Marin has lost her perrifial vision on the right in both eyes. If she is looking forward, she can't see anything on the right past her nose. Both eyes have this problem. There is a treatment called Nova vision which programs a visual screen test for Marin's eyes. Once a program is made for her, they give it to you to take home and do for 30 minutes each day for a year. It is only done a couple of places across the country. One of the places is here in Atlanta at Emory. Matt called and made an appointment for Marin. A glich is that it's not covered by insurance. If it will help her though, I definately think it's worth it.

We continue to crave your well wishes and prayers. We also continue to pray for those of you who have been so kind to share you story with us. God is watching over us. We all must keep looking up!

Sweet dreams,

Marin and mom Nancy


Tuesday, October 11, 2005 8:36 PM CDT

Good evening our extended family!

We really enjoyed reading the entries from today. It's like you are feeling what we are feeling and understand. How wonderfully blessed we are!

Today was great. Marin woke up with a smile on her face. The first thing she said was, "Mom, I feel back to normal today." When she got to rehab they casted her right leg agian. First the therapist bend her foot way up, then cast it. This helps her get more bending motion in her knee.

When rehab was over we went to radiation once again. We forgot but the TV crew was there to film Marin doing her radiation then an interview afterwards. Marin handled herself like a champ. I was proud how she entertained the questions they asked and she answered them with completing some full sentences. (Something which continues to be a struggle for her.) The clip will be shown on 11 alive at 11:00p.m. tonight here in Atlanta. Once again, my little girl rising to the challange.

After the interview, Marin and I went out to dinner across from the hospital at a little chinese place called "Fu." They were playing all 80's music. I was singing all the songs to Marin. (remember "Whip it") She had full live entertainment from her mother while she ate. She was laughing so hard at me she had tears running down her face. It was fun.

When we got back to RMH she played some games with her buddies Stephanie and Aaron.

Good day, great laughs, fun with friends. I would call that a successful day!


Good evening to our awesome support team,

Marin and mom nancy


Monday, October 10, 2005 10:02 PM CDT

Good evening!

Our Monday started out not so great so hopefully the rest of the week will be. Marin woke up feeling dizzy. She got dressed, ate breakfast, and we heading to rehab. When we got there, Marin started throwing up. We tried to get some liquids to stay in her but nothing would. Finally we got a Zofran, anti-nausea pill, to stay down and she started feeling a little better. We went back to RMH and she slept until radiation.

Marin wants so badly to be better. These are the steps that need to be taken to get there. Hopefully all these chemicals are burning the cancer out of her.

I finally got her to go out this weekend when we went to the movies. Now that she was sick, she feels that it was maybe too much action on the weekend. I'm sure when radiation is over, she will start to feel better.

Matt is going to be leaving in the morning so it's back to marin and I.

I know I have asked a lot from all of you out there, but please continue to pray for Marin and her recovery. It seems like when something good happens, often times things have to get bad before they make the turn around to get better.

We'll start the week over again tomorrow.

Under the stars,

Marin and mom Nancy


Monday, October 10, 2005 9:27 PM CDT


It was a bit of a rough Monday for Marin to finish off the long holiday weekend. While Mom and Dad were still glowing from an amazing swimming effort Saturday (is there a Guiness record for a half-body swimmer...?) Marin was worn out Sunday evening. On Monday she woke up still feeling ill. She went to rehab this morning but became too sick to get anything accomplished so we took her back to the house to rest. The better news is that by the time she came around in the afternoon she was feeling much better, especially after eating some lunch.

The illness left her rather weak but her spirit remained strong even as she went back to the weekday routine of radiation (not fun). The good news is the end is in sight as she enters the final two weeks of radiation therapy. Marin's strength and determination through this has been remarkable, and she is helped every step of the way by the support and prayers of all the caring people around the world who've taken up this fight with her. We thank each and everyone of you.

Still staying afloat,

~The Morrison family


Sunday, October 9, 2005 9:09 PM CDT

Hi! We just got back to the RMH. Marin is pretty tired from the weekend. I think from now on I'll have to tone down the activities a little.

Starting with Saturday, MARIN WENT SWIMMING! I mean, full-on swimming. No floaty, nothing. She swam great. I swam right next to her and she was faster than me. Both legs were kicking, and her good arm pulling. The right arm was just hanging down but I think the drag was good resistance for it. I told her next week to be thinking about doing a flip-turn! Her hip-flexors are still very week so we have a lot to work on this week in order for her to accomplish this.

It was great seeing some friends this weekend. Also, on Sunday, we went out to lunch and to the movies. By the end of the movies, Marin felt a little dizzy. I guess that's why God gave us seven days, the last one for rest!

We are starting tomorrow with two more weeks of radiation. After they stop that, I think Marin's energy level will slowly increase. I appreciate all the prayers for complete healing.

Staying afloat,

Marin and nancy


Saturday, October 8, 2005 9:11 AM CDT

Happy weekend,

Once again, I was slacking on the job and neglected to make an entry yesterday. I guess Friday nights I exhale and my brain turns to mush.

An overview of the week - Smooth and steady. I feel Marin has made progress. Something I notice is her awareness of everything that is going on around. She's increasingly able to carry on a conversation with us and her comprehension of certain things is improving. She's positive, driven, and inspired by all of your support.

There has been a few rough moments this week as well. Marin's knee works intermitently, sometimes bending just fine for her to walk a nice gate; other times it seems to not bend, then she has to swing her leg around from the hip which creates her toes getting stuck, her posture to fall apart, and she becomes a lot more wobbley. Often times at the end of the day, after she has showered and gotten her pj's on, she stands by the sink, looks in the mirror, and tears up. Her arm is hanging down at her side, more than 1/2 of her hair is gone, she's lost quite a bit of muscle tone on the right, and basically, it just sucks.

These feelings are more than expected as a human being has to endure something of this nature. Marin, however, immediately changes her attitude. She flips her hair back, smiles at herself, and says,"Mom, I'm doing great. I can do this. I know I am getting better and will keep at it until I am a champion again." The funny thing she doesn't realize, is that she has already become a champion, more so than anyone winning a gold medal, winning a scholastic honor, or obtaining the job of their dreams. She's the most admirable champion I have ever met and I'm sure a lot of you feel that way as well.

Today we are going back to the pool. Tonight I'm sure will be great after she gets to get wet, swim laps, and feel whole once again. I look forward to our swim and, of course, will let you know how it goes.

Here's to a wonderful day and we can't thank you enough for the help in cheering our little angle onto victory.

Fondly and thankfully,

Marin, mom Nancy

and dad, Cami, and Michael


Thursday, October 6, 2005 8:13 PM CDT

G'day everyone,

Marin continues to make us extremely proud as she strives for her recovery and hurdles the difficulties like a champion show horse. The folks in day rehab are trying different types of casting and splints to stabalize her lower right leg and ankle but haven't come up with quite the right equipment yet. Nevertheless, Marin moves forward with a great attitude and amazing strength in the midst of long days of rehab and radiation therapy at the end of each day. Despair sometimes comes to the surface but Marin never seems to let it linger. Hair loss is part of the issue but she flips her remaning hair over and looks cuter in a hat than she realizes. Nancy remains a rock for Marin, but the difficulties of the job and seperation from Cami, Mike, and Matt are tough on her. Thankfully this weekend we'll all be together for a couple days to enjoy family time with one another. Please pray for continued strength and healing for Marin.

Have a great Friday,

~The Morrison family


Wednesday, October 5, 2005 8:40 PM CDT

Hi everyone,

It was a family day of sorts as Matt and Michael joined Marin and Nancy at rehab and beyond. It was amazing to witness Marin's effort and determination in doing the everyday tasks the rest of us take for granted. Nancy's steadfast support warrants a Nobel Prize. We joined Marin for part of her rehab regimen, then accompanied her to appointments with her oncology team and then to her daily radiation treatment at Piedmont where Michael was rather impressed with the laser beams. Please continue to pray that the radiation is having the designed effect of killing off the cancer cells! We treated Marin to a nice dinner out before returning to the RMH for the evening. Nancy was waiting for a shipment of glyconutrients that she ordered earlier this week and we're hopeful these supplements will have a positive effect on Marin's recovery, as research and testimonials indicate can be the case. Has anyone out there had any experience with glyconutrients? Any input is appreciated. As always, thanks to everyone for your love, concern and kind correspondence.

Have a great Thursday,

~The Morrison family


Tuesday, October 4, 2005 8:13 PM CDT

Hi Everybody,

It's Matt here checking in on the big board as I'm off the road and reunited with Marin & Nancy for the first time in many weeks. Arriving at the RMH and seeing these two brave women looking so beautiful lifted an enormous weight off my heart. Marin amazes me with her smile and attitude. She's come a long way since I last saw her in the hospital and she makes me very proud to be her father. I witnessed her walking with a cane for the first time and I've never experienced that kind of joy. Nancy is a pillar of strength as her boundless energy commands each situation and her determination compells Marin beyond anyone's expectations. As Nancy said to me tonight, "...we're in a war mode!". Thanks again to all who's thoughts, prayers, notes, visits, sacrifices, and contributions of all kinds are helping Marin win this 'war'.

Have a great Wednesday,

Matt, Nancy, Marin, Cami & Mike

















Monday, October 3, 2005 8:33 PM CDT

Back to the grind stone today. Actually, so far, we don't feel like day rehab has been much of a grind stone. Marin and I had a talk and we decided that mom needs to have a talk with them. She doesn't feel like they have worked her very hard, and she doesn't feel like they have done any work at all on the right arm. So much for mom staying away! At the hospital, I carried a note pad and took notes on everything they were doing. That way they were accountable on a daily basis. The notebook is coming out again!!

In addition to therapy, I have been working on maintaining an optimum diet for Marin. Something I have ran across in my studies, is something called glyconutrients. It's a type of vitamin suppliment which seems good for Marin. Any comments or thoughts on this? Anyway, I feel why not.

Marin wants so badly to be better. She always ask me how much longer? I tell her I don't know. All I know is that we have to work as hard as we can everyday, make that one accomplishment each day, and sooner than we know it, she'll be as good as new.

We have three more weeks of radiation, then she can come home and rest after rehab.

Thanks for all the things that are feeding our souls. The Gatorade shakes are wonderful, the Sarasoda photos, the Hats and prayer necklace from Uncle Kelly and Aunt Barb. Your messages are so powerful and meaningful. We get recharged from your words.

Happy dreams under God's beautiful stars,

Marin and mom Nancy


Sunday, October 2, 2005 9:24 PM CDT

Wow, the weekend went fast. It was great being at Melissa's house and back living in the real world.

Saturday we had a really busy and fun day. Marin slept in for the first time since August 15th without being woken up. When we finally got up, ate breakfast, and starting moving, it was almost noon. Marin, myself, Cami, Mike, and Melissa and her daughter Jenn, all went swimming. It was both emotional and triumpheth. We figured the best way to get Marin in the water was for her to sit on the handicap chair and be lowered in. The lifeguard working helped us. He immediately said, "Hey, your Marin, you WERE that great swimmer from Collins Hill High School." I replied with, "And she is going to be that great swimmer again!" As he lowered her down I saw the tears streaming down her face. I can just imagine her agony and as I watched her being lowered into the water, I myself started crying as well. Once she was in the water, she started feeling better.

We both got kick boards and she held her bad hand with her good hand on the kick board and started down the lane, kicking and holding on. I kicked right next to her. After about 10 laps, she started getting stronger. With each push off the wall, her strength became greater. By the end of the 15th lap, Marin was clearly beating me on every lap of the pool. As we swam there together, she looked over at me with a big smile on her face. There were no more tears but a sense of contentment. Marin did laps for 1 1/2 hours. She tried a little breaststroke kick and was successful. She also tried her famous dolphin kick and was to weak on her right side to do it. She said the next time she will work on her dolphin kick.

Marin belongs in the water. She already is great in it again. I can't wait till we go again.

On Sunday, Marin slept in even longer. We had a very relaxing day with watching her little brother Michael play frisbee, watched a movie, and visiting with a couple of friends. We headed back to RMH at about 5.

We are recharged and ready to go at it again tomorrow. Here's to miraculous improvement this week and for complete healing of her tumor. We are in full battle mode and are strong to face the challange.

Happy monday and keep those prayers and support coming.

Big hugs, Marin and mom Nancy


Saturday, October 1, 2005 7:17 AM CDT

Good morning!!

These last few days I guess I'm getting more relaxed. Last night we had a busy night and ended it back at Melissa's house where Cami and Michael are. We spent the night in the basement and slept well. Marin does good on stairs when there is a railing, but there was no railing for her to hold. Being resourceful, she sat down and scooted down the stairs, no problem.

Yesterday we had a different day. Marin went to day rehab. I was told not to go. Within an hour of her being there, she started getting double vision. We can't explain the occurance of this but it will usually go away if she lays down and closes her eyes for about 1/2 an hour. Well, the didn't let her lay down and by noon, she started feeling nausiated. You could imagine trying to function seeing two of everything! Anyway, they called me and I went to pick her up and she slept for a few hours before radiation and the double vision went away. I know now that I am going to stay there to make sure she's getting what she needs!! (Her mom to keep an eye on things.)

After radiation, we went to a wig place to try some wigs on. We definately had a good laugh and decided Marin will go the hat route.

Right now I am sitting here with Michael. I miss my little man so much. He is going to be so good for Marin. It's amazing how a little person, who doesn't understand the situation, can cheer up a situation without even having to try. God really works wonders.

May everyone have a wonderful Saturday and I'm anxious to speak with all of you again regarding our swimming outing. Barbie Cobb (the bracelet lady) sent Marin a new suit to swim in. Marin is anxiously waiting to try it out.

Happy day from Marin, Nancy, and Michael!


Thursday, September 29, 2005 11:07 PM CDT

Greetings from the middle of the night,

Tonight, I fell asleep watching a movie with Marin. I must finally be starting to relax a little, yea.

Today, Marin was at rehab all day without me. When we went to the docs yesterday, the neurophycologist told me not to go for today, tomorrow, and all next week. She told me to sleep. I must admit I didn't sleep but I did a lot of laundry, fixed a flat tire on my car, cleaned and organized Marin and my 8' by 8' room, and actually showered and put on make-up. Tomorrow I'll sleep.

Marin did fine without me. He speech seems to be improving quite a bit. Her movement has plateaued a little. We are praying for a big surge soon! The arm, of course, remains a big source of worry for us but they say it will come back with time.

Today at radiation the doc asked Marin if he could use her to do a spot on TV about this machine they use on her (it's one of four in the whole US) He said he chose Marin because she tolerates it so well and acts so positive. Not suprising in the least. She said sure and that maybe she will inspire people that have to go through this not to fret so much. It's amazing, in her humble, subdued way, she's even inspiring the radiation doc with her attitude!

We stopped at a little "Fu" house on the way back to RMH and ate, then went back and played scrabble with her friend, Stephanie.

During the day, Marin received the most beautiful bouqet of sunflowers. It's so pretty it looks fake. I would like to make a fake arrangement after it to always have it. Thanks Stacy. You really brightened up our little room!

We look forward to the weekend and getting in the pool again.

Have a great Friday and your messages and prayers are so helpful to our day.

Going back to sleep,

Marin and mom Nancy


Wednesday, September 28, 2005 8:55 PM CDT

Well, the evaluation at day rehab is over. They gave Marin 90 days. What this means is that they believe in 90 days, Marin should be significantly improved and able to start going back to school starting with one or two classes. We are praying for leaps and bounds of recovery in that 90 days.

Marin seemed to be in a really great mood today. She has bonded with a girl named Stephanie who was also on the fourth floor rehab of the hospital, who is in day rehab, and also staying at the Ronald McDonald House. Stephanie is a beautiful young lady, 18, who was in a car wreck and broke her neck and several other things. They both have a hard time speaking and listening to them trying to carry on a conversation is pretty funny. Marin is walking with her cane more than riding in the wheelchair these last few days. She is feeling the effects of radiation and chemo a little more now and is quite tired after her radiation treatment. When we get back in the car, she sleeps for about 1 1/2 hours and I just sit there in the car with her.

The therapist said she would take the cast off she put on Friday so that I can take her swimming again this weekend. She will then reapply it on Monday.

We went to see the Oncologist today and she said Marin's white blood cel count looks really good. Frequently, they are lowered due to the radiation or chemo. Yea for Marin. Her strength continues, her determination perserveres, and her smile grows bigger with each day.

Thanks for all the lifts of encouragement throughout the day. Marin is making us all thankful for each day and is truely showing us what a champion is.

Sunshine to you,

Marin and mom nancy


Tuesday, September 27, 2005 7:12 PM CDT

Isn't it great that when we have a bad day, we can go to bed and go to sleep. Then when we get up, a whole new day has begun. We live our lives like this now. Today we started over. Marin went to day rehab for testing day #2. I didn't hang out all day so I'm not sure how she did. When I picked her up, she had a cast on her left leg. They said that clonis has set in pretty bad preventing her from being able to bend her knee fully. They said that the cast will help. It's kind of nice, actually, because we don't have to take the leg brace off and on constantly. They haven't given an assessment of anything yet, I think that happens tomorrow.

Melissa Rutledge met me at the mall with Cami and Michael. School got cancelled to conserve gas in Georgia so I took advantage to see my two other babies. We had a great two hours and I bought Marin some cute sweat outfits. She was wearing cute pajamas in the hospital but now she needs to wear real clothes. I kissed them both again a thousand time so hopefully this will last them until the weekend. I drove Marin to radiation and then she took a nap in the car on the way back to RMCD House. We had a nice dinner at Ronald McD and then played bingo with some of the kids staying there. Marin won all the games. Her luck is on the rise once again!

Encouraging words are an awesome thing to send right now. Thanks for all the awesome support!!!

Resting comfortably now in Ronald McDonald land,
Marin and mom Nancy


Monday, September 26, 2005 6:36 PM CDT

Well, our transition has been a little rocky but appears to be smoothing out into this evening. Marin actually slept better than she has slept since the surgery. She didn't wake up once last night. I guess there wasn't a bunch of people comming in and out all night.

We went to day rehab and I filled out a bunch of paperwork and Marin was "evaluated" all day. They say the first three days consist of evaluations and then they tell you how much "time you have to serve." Today is the first day Marin seemed a little sad. I think now that we're out of the hospital and going to regular doctor's offices, she had time to think about whats going on. Also, several times today everyone was asking her what she wanted to accomplish at day rehab. She said she wanted to swim competitively again. After so many times of people asking her her goals, she starting missing her sport, and love, swimming. On the way to radiation, she started crying.

She is going to get better and be a great swimmer. I told her she is still a great swimmer!! We stopped at Houstons, a good Atlanta place to eat, and ate good food. She seemed a little happier after that.

We are transitioning pretty well besides little bumps and will, once again, continue on the road to recovery.

I know she was feeling like a fish out of water today!!

Hugs to all,

Marin and Mom Nancy


Sunday, September 25, 2005 9:16 PM CDT

Yea, we made it! Our first transition out to the world again. With a lot of prayers and a lot of help, Marin and I are successfully moved into the Ronald McDonald House. I can't thank Clare, Divette, Matt, and Catheryn enough for you hours of time and home comforts to getting us moved in. I feel as if we are in a 1/2 house, helping us transition out into the real world.

We know several people that are here from the Rehab floor at Scottish-Rite. The bus comes at 8:30 in the morning to get us to go to day rehab.

I think this is motivating Marin even more by having to get out into the real world. She wants to function as independently as possible. Her drive to succeed is incredible!

We hope everyone had a wonderful weekend. I will post our new address tomorrow. Until then, make the most of everyday. We certainly are trying to do that and I feel like it is paying off.

Thanks again to everyone for everything!

A big hug from marin and nancy


Saturday, September 24, 2005 8:42 PM CDT

I think Marin is worn out today. We put a movie on about 9:00 and she fell right asleep. She had a happy day. We did therapy in the morning and left at about noon to visit Cami and Michael and to go swimming. It was wonderful for her to see her sister and brother. We all went to the pool together and had fun. Marin actually tried a little swimming and succeeded in doing a little freestyle and backstroke. Her arm didn't move much but she did it one-armed. You all can imagine the smile on her face when she stopped.

Tomorrow is the big move day to Ronald McDonald house. I must admit, I'm really scared to go out into the world with Marin. (You know you've been in the hospital too long when your afraid to leave!) I know we will be o.k. but everything seems so hard to do. We spent about 2 1/2 hours today just getting in and out of the car. I guess with time, like everything else, it will get easier.

My prayer request for this evening is to help our transition out of here be as smooth as possible and that dear old mom can handle taking care of Marin all by my self. As always, please pray for Marin's complete healing and recovery and that the tumor dissappears.

Thanks for helping Marin and I to have the strength to move forward. We will succeed. Marin will make sure of that!!

The proud mom,

Nancy and of course MARIN!


Friday, September 23, 2005 7:13 PM CDT

It's Friday! I just received a call from Cami, my 11 yr. old saying they cancelled school on Monday and Tuesday to send gas to those effected by Rita. Cami was pretty excited and she and Michael (my 3 yr. old) are going to the mountains with Melissa, my friend that has been keeping them.

Marin had her last day with her regular therapist today. The weekend is always different people. All the people have been so nice, personal, and encouraging. They have helped Marin continue to fight hard and strong. We hear that they push even harder in day rehab which Marin will start on Monday.

I plan to take Marin swimming tomorrow. Day rehab only goes Monday through Friday, so starting next week, our plan is to swim every weekend. I think with her progress she has made over the last few weeks, Marin will be plesantly suprised of her movement in the water. We will still have to wear the flotation belt and something on her bad arm. We'll just have to see.

As of today, there is 17 more days of radiation scheduled. Chemo will run for 42 days with a three week break, then repeat. The chemo will go on for at least one year, then they will assess.

Our journey is going to be long and hard. It is making us stronger, better people. We are thankful for everyday we have and every moment we spend together. We are TRUELY thankful for each and every one of you and all of you kind gestures. Thanks for helping ease the load. Marin's smile keeps shining through and her undying optomism is contageous.

Doing fine and smiling,

Marin and mom Nancy


Thursday, September 22, 2005 7:25 PM CDT

Once again, we had a busy day. Marin was a little wobbly today. We had this girl move next to us who moaned and yelled all night. Today, our nurse brought us earplugs to "sleep better" tonight. Anyway, once Marin got going, she did great. The one legged cane is the one they are going to send her home with. She has mastered it pretty good although she has to be a little more cautious. Today she was trying to be a little too fast and fell down. I think the only thing she bruised was her ego.

We had some good visits by Aunt Michael during lunch hour, Brenda Brody at radiation, and then Coach Weaver and Coach Puckett came with yummy dinner and we all dined in our lovely room. I think any swimming contact she receives really inspires her and I thank you all for taking time out to encourage Marin.

We have been given a discharge date of this Sunday. We have been confirmed to move to the Ronald McDonald house down the street from this hospital. Day rehab is right across the street so everything will be close.

Today was day 15 of radiation. 3 to 4 weeks left. Pray it kills those cancer cells forever!!!!!!!!!

Marin's positive and happy disposition has been rubbing off on many people here in the hospital. Several people who transport her to Piedmont for radiation came to visit her today and said they will miss seeing her smiling face. They ALL say that she has the fighting spirit to be healed.

We face everyday as a new day. We strive for accomplishments that they believe she can and can't do. We feel we are succeeding! Praise God.

Forever working towards that pool,

Marin and mom Nancy


Wednesday, September 21, 2005 6:59 PM CDT

Yea for Wednesday.

Firstly, quite a few of you have asked how to get Marin's Swimstrong Braclets. Here's what I know:

Barbie Cobb
cobbatl@bellsouth.net

write her and tell her your interested and she'll hook you up.

Marin had a great day. Since she did so well with the new two-step instead of three-step walk yesterday, they graduated her to a single-foot cane. She walked with that cane all the way down to the parking structure and then all the way back up to the fourth floor. Needless to say, she was tired when done! I continue to see progress with strength in both her arm and her leg. Her friend Jordan had a wonderful lunch waiting for her when she returned so the walk was worth it.

Today was day 14 of radiation. We are almost 1/2 way through already. We would love those prayers to continue and lets pray for the miracle that the tumor goes away completely and never comes back!!! We have become quite friendly with all the drivers that have transported us to and from radiation. When we leave it will be just Marin and me. There are so many wonderful people in this world!

We hope everyone is having a good week. Keep the messages coming. We appreciate each and everyone of you tons!!

Love, Marin and Nancy


Tuesday, September 20, 2005 6:17 PM CDT

Happy Tuesday,

Marin has worked hard, showered, pulled out huge chunks of hair, ate dinner, and now resting in bed watching the disney channel. She really continues to do awesome in therapy. Today they taught her to walk with her four-legged cane, trying to take out a step. She has been walking in three steps - cane first, then bad leg, then good leg. Today they took it down to two - cane and bad leg first, then good leg. It's a challange for her but she's determined to master it.

The arm continues to show a little movement, not much, but enough to be hopeful. I know all those prayers are working.

The radiation is working as far as the hair coming out, hopefully it is working on killing that nasty tumor as well. So far, Marin's hair is just coming out from the radiation. The reason we know this is it's coming out on the right, not the left. That's what they told us would happen. Chemo makes your hair come out all over the head. The type of chemo marin is on, about 80% of the people lose their hair, 20% don't. Well have to wait and see what effects it has on our dear little Marin.

Pam Karlins came by today with a yummy salad lunch and some money the Waves swim team has raised from a fundraiser. The Sarasoda swim team also had a car wash a few weeks ago and raised quite a lot. Thank you sssssoooo
much for the financial support. This road ahead is going to take a lot of therapy and hard work, and I appreciate everyone wanting Marin to continue getting the most therapy she can.

We have been tentatively set to leave on Sunday, Sept. 25th. They haven't given the official word. We will then move to the Ronald McDonald house, if a room opens up.

Hope everyone had a great day.

Lots of love from us here,

marin and nancy


Monday, September 19, 2005 9:18 PM CDT

Greetings from Scottish-Rite,

We have made it through another day, day 12 of radiation. Marin woke up this morning, ran her hand through her hair, and opps, a big chunk of it came out. She got upset a little but we knew this was coming. We just had tucked it back away in our thoughts until the day it would happen. The first thing she said was, "Do you think Aunt Eileen is done knitting me that hat?!" I know being a 15 year old girl and having your hair fall out has to be a hard.

The focus of the day quickly switched from the hair to working hard in therapy. She seems more determined than ever now. I know going to that swim meet was her motivation. Marin is a swimmer. That is her love. One way or another, she will compete again in the pool. It really makes me kind of excited to think about it because she never has given up on anything she's really wanted. She's probably feeling a little like a fish out of water right now.

Her arm continues to show improvement as well as her leg. We spoke with the oncologist today and she said they don't know how much the radiation and chemo will help. It really hit hard to me that Marin still has a brain tumor in there and they have to get rid of it. This stuff HAS TO WORK. Please pray for the radiation and chemo to work and for it to completely get rid of that tumor. I can't even imagine to have to go for a third surgery!

All your well wishes and prayers have lifted us up so much. We continue to be positive and hopeful for full recovery from the tumor and paralasis.

Thanks for the wonder basket of munchies from my fitness buddies and the wonderful sushi from Chris and AJ Owens. Everyone's kindness is so wonderful.

May tuesday find you happy and healthy.

Motivated beyond words,

Marin and mom nancy


Sunday, September 18, 2005 7:45 PM CDT

Yea!! Marin made it to the first Swim atlanta meet for short course. She was a little hesitant to get out of the car but was thrilled once she got inside. I was so touched to see the braclets being sold for Marin. We have a lot of rehab ahead of us and we all know how the insurance goes, 20 days paid for, then they cut you off. Not to mention all the medical with radiation and chemo. Anyway, I don't have words to show you all our appreciation. (and those of you who know me, know I'm hardly ever at a loss of words!!)

Anyway, I think when Marin was sitting there watching all her friends swim, she got extremely motivated. All the way home, she tried to move different things on her right side. When she got back to the hospital, she worked really hard on her therapy. She said to me, "Mom, I'm going to swim again fast!"

Thank you to all Marin's friends for making her feel special. Thanks to all you great parents for keeping me motivated to keep the strength up. We are truely blessed.

Swimstrong,

Marin and Nancy


Saturday, September 17, 2005 9:01 PM CDT

Hi everybody,

Saturday was a wonderful day for Marin in many ways although it started off on a down note. She awoke feeling ill and after trying to go through her morning rehab schedule, she had to cut the session short due to nasuea and double vision. The better news is that after taking a mid-morning nap, Marin awoke feeling much better.
Better yet, she felt well enough to take advantage of a day out pass and Nancy took her to the home of the Rutledge family where they spent the day with Cami and Michael along with our good friends the Rutledges. Marin was able to negotiate the front steps like a pro and everyone enjoyed their afternoon together followed by a pizza party for dinner.
The best news followed in the evening after Marin and Nancy returned to Scottish Rite. While doing exercises and stretching, Nancy reports Marin was able to push with her right arm! This is a major breakthrough and we are overwhelmed with joy! Isn't it amazing that on Thursday, Nancy's message here stated boldly, "KEEP PRAYING FOR THAT ARM!!!" Well it's working! Thank you all for your faith and wonderful support.
On Sunday, Marin will be supporting many of her good friends and cheering on her little sis at the Swim Atlanta time trials in Alpharetta. Have a great Sunday everyone.

Love,

~The Morrison family


Friday, September 16, 2005 7:10 PM CDT

Tonight both Marin and I are sleepy. Marin continued to work hard. I actually got to get out for a little today. My friend Kelly Busbee came and went to therapy with Marin. I wanted to do something completely normal. I went to Target. (Oh boy!) Actually, I stopped there quickly and then went and took Michael, my 3 yr. old son, out of day care and went to the park with him for an hour. It was great to spend time with him. I must have kissed him bout 1,000 in that brief time. He didn't seem to mind.

Marin continues to work hard, smile a lot, and have an wonderful positive outlook. She's excited about seeing her sister and brother tomorrow and attend the swim meet on Sunday.

Thanks for everything everyone!!!!!!!

Party poopers on a friday night,

Marin and Nancy


Thursday, September 15, 2005 9:31 PM CDT

It really feels like this week has flown by fast. Today Marin and I went on a tour of the day rehab facility that she will go to when released from here. Seemed like the same set up except you don't sleep there.

When we go to radiation, an ambulance usually transports us. Today they were unable to do so. Marin and I got over there ourselves in my car. We were pretty happy about our accomplishment!

Marin worked hard today. She walked with her cane all the way down to the parking deck from the fourth floor, stairs and all! On her return her friend Jordan was waiting with PF Changs for lunch. It made the walk worth it! Also, my dear friend Brenda briefly stopped by with these awesome fruit tarts and a memory foam matress for my little couch! I never knew that such simple pleasures could make me so happy. I look forward to perhaps getting my first good night sleep in awhile.

Marin was happy with her cards she received in the mail today and her visit from some swimmers from Parkview High. All of you have been so wonderful! I have received some really wonderful heart-felt notes over the last few weeks and I am sorry for not replying. I want you all to know how special they are to me.

The surgeon stopped by and said he was suprised that Marin hasn't gained any movement at all in the arm. KEEP PRAYING FOR THAT ARM!!!

May everyone have a wonderful Friday and may God's grace shine down on us all.

Swimming dreams, Marin and Nancy


Wednesday, September 14, 2005 7:45 PM CDT

Today we once again had a busy day. Marin worked hard. She remains in great spirits and confident about her recovery. We went across the street to another hospital and ate at McDonalds. It was considered a theraputic outing and Marin ordered. She didn't get what she wanted but even attempting to order is huge progress.

We are trying to get passes to leave a little this weekend. On Sat I would like to take her to see her sister and brother. On Sunday we are going to try to go to the time trials for a little for Swim Atlanta.

I don't know why but I'm having a harder time with all of this now than I was earlier. I guess the realization of everything is setting in. Marin remains my source of strength and joy. I am definately learning from her right now.

May the middle of the week be great for all of you.

Best wishes, Nancy and Marin


Tuesday, September 13, 2005 7:45 PM CDT

Hi!! I know I always start out thanking everyone for your continued support. We really mean it!!! The cards, messages, swim photos, caps, messages of encouragement, help with Cami and Michael, food, prayers, car washes, and continued belief in Marin ARE what gets us throuogh the day!!

Today they didn't push Marin very hard in therapy. Her right hip seems to be sticking out a little now and they were concerned about possible problems. They did xray it and, yea, no problems. Marin can get back to business tomorrow.

There is a scheduled date of a week and a half to release Marin from the hospital. We will then move to the Ronald McDonald house and attend day therapy. Staying here would place us right next to day therapy and they feel Marin needs as much rest as possible without having to take long car rides that aren't necessary.

Her progress seems to have slowed down a little, her hard work and smile, however, have not. Radiation and chemo have not taken there toll on our dear little Marin yet, and hopefully her strength with continue to progress towards a complete recovery.

Happy swimming and happy day,

Marin (and her mom Nancy)


Monday, September 12, 2005 8:15 PM CDT

We can't believe it's already Monday again.

Monday is always welcomed with us. Marin continues to tolerate the radiation quite well. Chemo has so far not made her sick. While at radiation today, the doc said that her tolerance to the radiation is a good sign that chemo will be better tolerated than by some folks. Good news.

Marin's leg continues to show renewed strength daily. Today she took a few steps without a cane or anything! (We're still praying hard for that arm!!) Marin's smile continues to grow on the right side. Everyday her facial muscles seem to becoming stronger as well.

One thing I'm not sure if we mentioned is that her visual field on the right side is gone as well. Anything to the right of her nose is not visible. When she returns to swimming, her coach Chris will have to make sure he stands to her left so she can see him!!

Today was a beautiful, sunny day and Marin, myself, and a bunch of Marin's therapist sat outside for lunch. It was great to soak up a few rays.

May the sunshine fill each one of you with energy to tackle this busy week.

May God bless you,

Marin and Nancy


Sunday, September 11, 2005 3:15 PM CDT


Happy Sunday to everyone,

Marin enjoyed her relaxed schedule this weekend but is anxious to get back to her full routine of rehab Monday. What a girl! Extra sleep was good for her as she started her chemotherapy on Friday. So far, she's had no nasty side affects from either the chemo or radiation. Credit Nancy with continuing to make sure Marin has the proper nutrition. Our good friends Darla, Divette and Anne spent a lot of time with Marin on the fourth floor this weekend and we thank them for helping to lighten the load. Thanks as well to all the wonderful people who continue to contribute prayer suppport and inspirational messages in Marin's guest book. Enjoy the rest of you weekend!

Love,

The Morrison family


Friday, September 9, 2005 9:30 PM CDT

Marin continues to shine in her determination as she performs her painstakingly slow rehab. Her positive approach to accomplishing difficult physical tasks is truly inspirational. Today marked the first completed full week of radiation therapy, and so far she's handled it with no noticeable side affects. There's no doubt that the careful preparation by Nancy in making sure Marin has the proper diet and supplements has been a big factor. Thank you to everyone out there who's offered their nutrtition tips (keep 'em coming!) and a big thanks to our great friends Melissa, Kelly, Anne, and Divette (& Matthew) for their extra special help this weekend.

All the best,

The Morrisons


Thursday, September 8, 2005 9:25 PM CDT

Hi to everyone

Marin woke up smiling and continued to all day. She seems to have a renewed strength to continue to improve. I know it's from all those prayers. She can definitely feel them.

Now that Marin is gaining more of her comprehension abilities back, I catch her frequently staring at certain parts of her body that won't move and trying to move them. She knows that her brain is controlling all these parts and she's convinced she will retrain it to move them. Her appetite is very good and she is taking advantage of her little breaks to rest.

Radiation seems to be going well with little side affects so far. Her hair won't start to fall out for a few more weeks is what we are told. Chemo treatments are also starting tomorrow. She will receive it once a day for 42 days and then have a three week break. Marin continues to take all this news very bravely and is very optomistic about her challange ahead.

I continue to pray for complete recovery and her ability to swim at a high competitive level once again. I know one thing, if anyone can do this, it's Marin.

May God smile down on each and everyone of you today!!

A big hug from us both,

Marin and nancy


Wednesday, September 7, 2005 7:14 PM CDT

working hard wednesday

Today Marin smiled a lot more. Her progression is slow and steady. She walked with her cane from our 4th floor down to the fish pond. It really makes her smile to be able to be out in the sun.

Marin's speech is also improving little by little. Her sentences are short but she is forming them now. I know how badly she wants to see people, but she is also very uncomfortable with her speech and the fact that she can't move her right side. Marin's 3rd day of radiation went smoothly, 30 more times to go.

The therapist are working to teach her typing with her left hand. She also mastered tying her shoe with that hand. They said she is the first patient in rehab that actually learned how to do it (tie the shoe). Our concern is that they are paying less attention to the right and focusing on using the left. Keep praying for that miracle to happen in room 443 at Scottish-Rite!! She needs that right arm to swim!!

May all your prayers be good tonight and have a wonderful day on thursday.

I will be writing you, all of our friends, again soon.

Most fondly,
Nancy


Tuesday, September 6, 2005 6:06 PM CDT

hello fellow swimming fans, friends, neighbors, family, etc!!!!

Marin continues to be awe-inspiring!! She worked hard in therapy today from 8:00a.m. until 2:30p.m. The transport service picked us up at 2:45 to go to Piedmont hospital for radiation. When Marin gets radiation, they put this tight fitting mask on her face as she is to lay perfectly still on her back. The technicians are always asking her how she's doing and her response is always, "great." Anyone who can answer they're doing great under these circumstances is amazing to me, daughter or not!

I thank all of you so much for all your support and help. Anything that someone thinks we can benefit from, we would gratiously accept (ie: advice, products, food, etc.). The cards, incredibly thoughful gifts, messages, and prayers are wonderful!) We really enjoyed the signed swim caps that Marin received today. Great idea!

Every step Marin takes is for all of you. Her faith, hope, and courage is teaching me more than I've ever learned before.

May you day be filled with sunshine as Marin fills my days with her sunshine.

The reporter, Nancy (and of course, Marin)


Tuesday, September 6, 2005 0:03 AM CDT

Hi everyone,

We hope you all enjoyed a nice holiday weekend. Marin and Nancy "escaped" from the 4th floor for the day and spent the afternoon in the sun SWIMMING! at a local pool with cousins Eileen, Brad, Sarah and Bradley. Simply being in the water is amazingly therapeutic for Marin... she's able to kick some with her leg and the exercise seems to be very effective. Simply being in the sunshine is amazingly therapeutic for Nancy, who's been going a little stir crazy from staying in the hospital these last several weeks. If only for a short time, it was great to get outside!

Tuesday it's back to the full schedule of rehabilitation and radiation therapy. Thank you all for your continued support, thoughts and prayers. This is a very difficult stretch physically, mentally, and emotionally and knowing that so many of you are in our corner is very uplifting to all of us.

~The Morrison family


Sunday, September 4, 2005 8:55 PM CDT

Happy sunday friends and family

Today was 1/2 day for therapy. Marin's body seems to be a little tired this weekend. I'm not sure if it is from the radiation, the fact that Michael was here, or a combination of everything. She continues to work hard but also seems to be a little frustrated. Please continue to pray for Marin's recovery.

This evening she was experiencing a little double vision. This scared her quite a bit. She is now resting with her eyes shut. Hopefully this is a temporary thing.


We appreciate all your continued support and friendship. Knowing that she is loved is what keeps her strength up. May everyone have a happy holiday tomorrow.

A huge hug from us, Marin and Nancy


Saturday, September 3, 2005 8:31 PM CDT

Hi Everyone,

We hope you're enjoying a wonderful holiday weekend. The work load was a little lighter for Marin in a half-day of rehab Saturday but her effort and determination continue to be 100%. Nancy and Marin consulted with an accupuncture specialist who visited today and determined that massage and pressure point therapy is the right place to begin, so she'll be able to perform this type of help without Marin needing a pass out of the hospital. We're very grateful for this generous help. Michael is also spending the weekend with Mom and Marin at Scottish Rite... what an adventure. Thanks so much to all our friends and neighbors who've been so amazingly helpful during every twist and turn of this experience, and to all those who are supporting us in prayer and spirit.

With Love,

~The Morrison family


September 1, 2005, 9:15 p.m.

Hi!! A lot of you I'm sure are traveling out of town today. Cami, Marin's 11 year old sister, is going up to her friend Megan's lake house. Michael, Marin's 3 year old brother, is coming to hang out with Marin and I at the hospital this weekend. Scottish-Rite will never be the same!! Marin had more success walking. She also walked on a treadmill.

The radiation hasn't effected her energy level yet. They say it's more towards the end that it becomes a problem. We are happy and feel that God is on our side. Marin continues to look at every situation as a chance to challange herself.

Here's to a wonderful weekend. Thanks for the overwhelming continued support from all of you. We are trying to get a pass so I could take Marin out swimming. Go Marin go!!

Lots of love,
Nancy and Marin



September 1, 2005, 9:15 p.m.

Sailing right through today!!

Welcome to all of you. I firstly wanted to thank JC Clemons for the wonderful article you wrote on Marin in the AJC today. This article, as well as everyone else's heart-felt messages, are so appreciated by our family and Marin with helping in her recovery. I also wanted to thank Brenda Brodie for showing up at Marin's first day of radiation as "waiting room support." Our hearts have been touched by the kindness of everyone!

Marin made us all REALLY proud today. In therapy, she went around the entire floor, went up and down two flights of stairs, did 40 squats, and walked all the way back to her room (all with a four-legged cane). Her speach is improving and she is being able to complete small sentances. She went to her first radiation treatment and said it was "fine." Keep praying for that arm.

Marin and I are now watching Hitch. Our dear Matthew that brings us the "Joke of the Day" delivered a suitcase full of movies for Marin to enjoy. Marin is happy and feels like she had a really good day. She rose to all the challenges presented to her. That always makes her feel good. Here's to each and everyday being a success!!

Tough times don't last, but tough people do!!

Fondly,
Marin and Nancy





Wednesday, August 31, 2005 9:27 PM CDT

Greetings from our little world.

Today Marin walked with a cane. She went up and down the halls, up and down the stairs. She still can't feel her leg working but her muscles are contracting and she's lifting her leg with her hip. She felt successful. Her hand and arm remain lifeless and we pray hard everyday for it the "come alive." I am working on getting an acupuncturist and message therapist into the hospital. I feel these things would loosen up her body to help heal her.

There has been a change of plans with radiation and they will start tomorrow, Thursday. Their sense of urgency really scares me but at the same time, I feel, lets get this thing out of Marin now!

Marin and I believe that every day, every hour is worth fighting for. We press onward with our fight being held up by our support team, God and all fo you!!!

Dreaming of swimming, Marin
Cheering her on, Nancy


August 30, 2005 10:00 p.m.

Hi friends and family,

Marin is resting early this evening and seems to be quite happy. We had a hectic day being transported all over. First we went to the radiologist and then to another facility to get a MRI for exact mapping of where they are going to radiate Marin. They said because of wanting to be so precise, the preparation is going to take a little extra time and they won't be able to start radiation until next Tuesday.

Marin also received a leg brace today to hold her ankle in place so when she is trying to walk with the walker, her foot won't be flopping around. We even attempted going up and down the stairwell of the hospital with it on. (we did have the therapist helping with that one!)

Yesterday Marin received a dozen long stem red roses and they smell spectacular! All the nurses as stopping by to "smell the roses." Marin's middle name is Rose and I told her I was thinking of exactly how these roses look and smell when I gave her that name.

Thanks once again for all your support for my little Marin Rose.

Sleep tight,

Nancy ( and snoozing Marin!)


Hi!

How come we never say "Thank God it's Monday!? " Anyway, it was good to be back on Monday for us. We got to work hard again throughout the day. We did have an appointment with the Radiologist and he told us the procedure for the next six weeks. The office for the Radiologist is at a different hospital, Piedmont, which is about 10 miles from here. Too bad they don't have one close by.

The plan is to continue with therapy daily and then go to radiology every late afternoon. If Marin's strength starts to decline, they will have to cut back on her therapy.

When we got back Marin wanted to practice walking again. We went to the "gym" and practiced with a walker. After a while someone came in and told us we couldn't workout without a therapist present. I guess we'll have to walk the halls. Marin is displaying a little anger with her weak side and is determined to get it working. I think all those prayers of hard work are striking home with her.
Keep those prayers and advice coming. She wants to show everyone out there it can be fought and won!!

Here's wishing for a cozy bed but settling for the hard couch, Nancy

I'm fighting hard!! Love, Marin


Sunday, August 28, 2005 8:11 PM CDT

Happy Sunday -

Schedules on Sunday are a lot toned down here on the 4th floor at Scottish-Rite. Marin did about 3 hours of therapy this morning. We also went to the little church service that they hold here. It was inspiring and they prayed for complete recovery for Marin.

Marin continues to show progress with strength in the right leg. The arm hasn't reponded yet. Today we decided to write down one thing everyday that she accomplished that she couldn't do the day before. We are also going to have weekly goals. I've decided that tomorrow I'm going to bring my blender down so that I can make her whey protein shakes after radiation each day. This hospital staff is going to think we are nutty but who cares!! If anyone knows of any food, etc. that might be benificial during radiation and chemo, send it to us on the guestbook.

Marin continues to ask when she is going to be able to swim and tears up. This is when we decided to set our daily goals towards getting back in the pool.

Your words of encouragement mean more to us than you could ever, ever imagine. Please keep them coming and we are focused on getting to know as many of you as possible when all Marin's treatments are done. Now we are focused on healing and recovering.

Here's to moving full speed ahead!!

Marin and Nancy


Saturday, August 27, 2005 9:04 PM CDT

Here's to a wonderful Saturday in August -

Today was a less hectic day. The therapist only do 1/2 days on the weekends so marin was deprived with a shorter workout. Marin's leg continues to show strength although she can't really feel it. Her arm has not responded yet,s but we are hopeful that it will.

Marin is also continuing to improve with her speech. Full sentences still don't come out but individual words are becoming clearer. Mark Henderson sent her a tape on the "Duel in the Pool" and she thoroughly enjoyed watching that today.

Marin continues to be one of the few on this floor with a smile and I think her positive attitude has spread and helped several patients here.

May God give each and everyone of you joy for being such wonderful supporters and friends.

Big hugs to all, Marin and Nancy


Friday, August 26, 2005 6:53 PM CDT

Hello everyone!

We had a most eventful day today. Marin spent her whole morning in therapy, as usual, and continued to wow everyone there. She is so determined it's wonderful. Then the big event, SWIMMING!!

It took about an hour to actually get to the pool transporting Marin in and out of the car. Once we got there, her whole face lit up. They pushed the wheelchair to the side of the pool and she climbed out of it and into the pool all by herself! Once she got in the pool, however, she realized that her weak side wasn't floating and it was a little scary for her. They put a weight belt on her and then she was able to hold herself up. The therapist had her walk a little and move different body parts around in the water. She then held onto the therapist neck and kicked. It appeared that both, not one leg was kicking. After several laps around in a circle, we determined that in fact Marin was kicking a little with her weak leg!!! The fact that gravity had been lifted from her leg, it worked a little. Praise God!!! Hope is getting stronger and stronger everyday.

Marin will start radiation next week and will continue with it for six weeks. The cards, flowers, messages on this website, are all what is keeping her motivated. Her Coach Chris told her he would take her to Costa Rica when she recovers. She's holding him to it!!

God bless and have a wonderful night!

Lots of love to all,

Marin and Nancy


Thursday, August 25, 2005 8:00 PM CDT

Happy Thursday!

Marin and I had a busy day today. We did all her working out all from 8 until 4. Marin got a special visit from Coach Chris from Swim Atlanta today. He lifted her spirits greatly! My dear little Marin seems to realize that this is going to take awhile. She started working even harder today and is determined to recover.

She also got food brought to her. Sushi, chicken, and rice. It was a lot better than that hospital food we've been eating everyday.

Thanks to all our family and friends for helping us out so much!!


The Lord is my rock, and my fortress, and my deliverer (Psalm 18:2)

Fondly,

Nancy and Marin


Wednesday, August 24, 2005 8:44 PM CDT

Marin and Mom here again,

Another good day, and bad day.

The good news is that Marin continues to work hard in theropy impressing all those helping her with her physical strength as well as her determination. Her muscles are responding to certain movements even though her feeling on the right side has not returned. We feel more and more confident that Marin will swim, and walk again.

The bad news is the pathology report came back calling her tumor malignant. They wish to start radiation first in the next few weeks following shortly by chemo running both simultaniously for six weeks to three months.

Please continue to pray hard for our strength as well as Marin's full recovery.

Most fondly,
Nancy and Marin



Tuesday, August 23, 2005 9:29 PM CDT

Greetings from Marin and Mom

Right now we are sitting here at the hospital. We actually had a good day. Marin's pain is pretty much gone so they decided to take the IV out. She is still getting tylenol and motrin every 4 hours.

Theropy went good today. Marin likes to have a schedule of activity all day. They had her walking down the hall, (with two theropist and a walker). She walked all the way down the hall and they asked her if she was tired. She looked at them as if they were kidding. "no" was her reply. She thought they were testing her for some great walk after that and that was just the warm up! I think they are realizing how hard she works and how determined she is. On friday they are taking her to a pool locally located to let her get in! Her face is smiling right now as we write this journal together.

One way or another Marin will continue to be a great swimmer. Her heart, sold, mind, and dreams exist there. She has realized from each and everyone of you that as an athlete, you share a special bond. Marin want to create some type of foundation of athletes helping athletes as soon as she is able to. I am sure a lot of you feel this way too.

Keep uplifting our dear little Marin in prayers and pray for complete recevory.


Marin said if she couldn't do anything for a long time, she could get to know each and everyone of you that have taking time out to say hello, tell her their story,and send words of encouragement. I always tell my girls everyay to "Go the extra mile, it's never crouded there!"
Here's to all of you going the extra mile tomorow!!

Big hugs, MARIN and nancy


Monday, August 22, 2005 7:21 PM CDT

Hi everyone,

It's been one week since her latest surgery, and this Monday was back to work day for Marin here at Scottish Rite. Feeling much better than she did Sunday, she went through her many sessions of rehab and while she may not be making a fast physical recovery, she is making progress. Right now she's learning to function with her right arm and leg paralyzed... getting dressed, tying shoes, moving from bed to a wheel chair... all huge challenges when half her body just won't function. Marin is facing her difficulties with great courage and is giving her best effort when attempting to stand and walk in a walker. She's not able to move or sense touch on her right side but she seems to be more and more sensitive to her muscles when we stretch. She is able to press with her right hip and upper right leg and the strength in that area has improved since we first noticed movement a couple days ago, so that's encouraging. Her smile is also returning to her right side more than it was last week. Marin's attitude remains positive but she struggles with sadness at various points during the day. One sure way to cheer her up is when we read the messages on her guestbook to her. Thank you to all of you who continue to pray and take the time to write uplifting messages... your loving contributions are definitely having a positive affect and we appreciate this deeply.

~The Morrison family


Sunday, August 21, 2005 10:13 PM CDT

Hi Marin's support group!!

She is much better this evening. The doctors ruled out any infection or other problems and think perhaps that her skull has shifted a little, need less to say, causing her a lot of pain. They are continuing to give her more pain medicine and steroids so the problem won't escalate again.

Marin is so strong mentally and physically. She is proceeding with full confidence of complete recovery and asks several times a day when she'll be able to get back in the water.

My daughter is my hero.

Have a wonderful night and thank God for all your wonderful blessings.

Nancy- Marin's mom

P.S. Her dear friends Abigal and Jordan brought her yummy shrimp pasta and spinich/crab dip which were a definate hit for Marin!! Also, four boys in the neighborhood held a car wash for Marin and raised 140.00!!!! Thanks Derik, Tyler, Benjamin, and Harrison for a fantastic job. Lots of love gives Marin lots of reasons to smile!


Sunday, August 21, 2005 1:52 PM CDT

Hi.
Marin has been having a very difficult time today. She is in severe pain. The docs did a CAT scan and some blood work to make sure no infection has occured. Everything looked ok. They have now given her some muscle relaxive meds and are starting an IV with stronger steriods and pain medicine. They have stopped any theropy until she's doing better. Our dear little Marin.

She definately is a fighter and I admire her courage and strength more than I can even express. Thanks for everyone's support. It is what is helping us get through this.


Most fondly, Marin, Nancy and family


Sunday, August 21, 2005 8:22 AM CDT

Good morning friends, family, fellow swimmers:

This is Marin's mom, Nancy. I spent the evening with Marin last night and then came home to sleep with Camie and Michael at about 11:00p.m.

Marin and I had a great time hanging out last night. Her muscles have been getting extremely tight so we started stretching. We did stretching followed by massaging her about every 1/2 an hour. After about two hours of this her headache seemed to be much better, as well as her aches and pains on her body. While we continued to do this, we read a lot of awesome messages from everyone, which brought tears of joy to her face. We then watched Something's Gotta Give which had Marin laughing out loud.

I know God doesn't intend for Marin to be like this forever and I hope all of our prayers will heal her fully.

Happy day,

Nancy, Marin, and family


Saturday, August 20, 2005 9:52 AM CDT

Marin is now in her second full day of rehabilitation and she's showing promising signs. Her determination is impressive and she's able to accomplish more than expected. Right now, the everyday life tasks of getting dressed and brushing her teeth are challenging and Marin is facing them head-on. She has sensory and motor paralysis on her right side, meaning she needs to rediscover feeling as well as strength & motion. During stretching exercises over the last two days she has demonstrated some strength in her upper right leg between her hip and her knee: she was able to push on my hand... a good sign. It's frustrating for someone used to three hours of swimming everyday but Marin is handling the difficulty with grace. We continue to be uplifted by all the affection and support of our wonderful neighbors and family, as well as everyone who's contributed to this web site. Thanks for all your positive messages.

~The Morrison family


Saturday, August 20, 2005 8:51 AM CDT

Marin is now in her second full day of rehabilitation and she's showing promising signs. Her determination is impressive and she's able to accomplish more than expected. Right now, the everyday life tasks of getting dressed and brushing her teeth are challenging and Marin is facing them head-on. She has sensory and motor paralysis on her right side, meaning she needs to rediscover feeling as well as strength & motion. During stretching exercises over the last two days she has demonstrated some strength in her upper right leg between her hip and her knee: she was able to push on my hand... a good sign. It's frustrating for someone used to three hours of swimming everyday but Marin is handling the difficulty with grace. We contiue to be uplifted by all the affection and support of our wonderful neighbors and family, as well as everyone who's contributed to this web site. Thanks for all your positive messages.

~The Morrison family


Friday, August 19, 2005 3:46 PM CDT

It's been an eventful day for Marin. After she was moved to the rehabilitation unit Thursday evening, her schedule kicked-in early Friday morning. Marin will be undergoing speech, occupational and physical therapy for as long as it takes to get her well enough to go home. The goal is to have that done quickly but we don't have a clear timetable beyond a week or so. Right now Marin remains paralyzed on her right side. 'Lefty' is unable to use her right arm or leg, and she really doesn't have feeling, but there are some signs that her senses in her legs are stirring and her reflexes are strong. She had a couple instances of slight movement, and as she continues to recover from the swelling and trauma of surgery, there's expectations that this will continue to get better. With rehab we're praying for a strong recovery. Mentally, Marin is doing very well with comprehension and recognition but her speech communication has been affected. She's capable of speaking clearly, although her voice is weak. Her problem is in the formulation of sentences; she knows what she wants to say, but the words often get tangled and confused between her brain and her lips. This is very frustrating for Marin right now, but there's no question she has all her speaking faculties. Despite a day-long headache, she kept a great attitude through her first day of therapy sessions and we could already see improvement. She enjoyed visits from some new friends who are also getting well here at Scottish Rite, her pal Jordan, Uncle Charlie & Aunt Sue with cousins Michelle, Luke and Ansley, plus her coaches and teammates on the Collins Hill High swim team. Thank you to everyone for your great love and support.

-The Morrison family


Thursday, August 18, 2005 11:01 AM CDT

Marin continues to keep a positive attitude while the gravity of her circumstances begins to sink in. She has begun working with the physical, occupational, and speech therapists while recovering from surgery. This morning Dr. Hudgins removed her IV and inner-cranial drainage tubes so Marin is 'free' from her tether lines. The plan is to move her to the rehabilitation unit later today and get started on her future. We're told she may be in the unit for a week or two. Marin's spirits have been lifted by the many well-wishers who've written in her guest book and among the cards, etc. sent by well-wishers is an amazing display of swimming baloons sent by MH, an Olympic gold medalist. His article in swimmingworldmagazine.com touched us deeply. Marin is inspired by this outpouring of affection and is showing amazing courage. We are extremely proud of her. Thank you all for your love and concern.

~The Morrison family


Wednesday, August 17, 2005 5:40 AM CDT

Marin was released from the PICU Tuesday afternoon and spent a restful night on the main floor. She remains brave as she struggles with the reality of her right side paralysis. She is also having some difficulty with her speech and language but she's working through this. We have already begun working with a physical therapist to advance her recovery and Nancy and Matt are supplementing the exercises with round-the-clock sessions. We continue to pray for healing in this area of her brain so that she can regain the function of her right side. We hope that as the swelling from the trauma of surgery subsides, we will see improvement in her feeling and motion. Please continue to remember her in your prayers and keep the encouraging words coming. Thank you!

Love, The Morrison family


Tuesday, August 16, 2005 4:48 PM CDT

It's been an eventful day and we waited to pass along the latest. GOOD NEWS: Marin was released from intensive care this afternoon and is now in a room on the first floor. Her MRI showed that the surgeons excavated about 85% of the tumor (it was really big!) and her brown has significantly shifted back toward it's more normal position. LESS GOOD NEWS: Marin remains paralyzed on her right side and the reality of what this means is beginning to sink in for her. She is being very brave, but she's saddened and frustrated be her inability to move or even feel anything on her right side. Still she is maintaining a great attitude and already showing the fighting spirit that it will take to make a full recovery. Nancy is being very proactive as the rehabilitation specialist learned when he made his first visit this afternoon. There remains reasonable expectation that once the trauma of surgery subsides that some of her feeling and motion will begin to return. We're not sure how long this may take, but your prayers are certainly every bit as important now as ever. Thanks again to everyone for your love and support.

~The Morrison family


Tuesday, August 16, 2005 8:05 AM CDT

Marin had a resful night in the PICU and was in good spirits this morning. Dad had a less restful night with her in the unit, and Mom may have had the worst of it at home trying to get any sleep with Michael! The effects of the surgery leave Marin a little more swollen today, but all of her vital signs remain strong. She is still not moving anything on her right side. She went in for an MRI shortly after 7am this morning and we're waiting on a reading from Dr. Hudgins. We'll continue to keep you updated as information becomes available. Thanks again to all who expressed concern during the anxious hours Monday; whether here with us at Scottish Rite, or with us in spirit through cyber space, the love and energy was very helpful and comforting.

Love,

The Morrison family


Monday, August 15, 2005 4:43 PM CDT

WOW, WHAT A DAY!

Marin underwent surgery beginning at 8 am in Atlanta. Told to expect a long procedure, perhaps 6-8 hours, we were pleasantly surprised when Dr. Reisner emerged after 3 and a half hours to say that Dr. Hudgins was finishing up in the operating room. Marin made it through the surgery in good condition. After another hour in recovery where she was given frozen plasma to reduce the chance of bleeding, Marin was transfered to the pediatric intensive care unit where Mom and Dad spent the afternoon enjoying her moments of consciousness. Marin smiled and was responsive to questions saying she feels pretty good. Right now she is suffering from paralysis on her right side; she has feeling but she can't move her fingers, toes, arm or leg on the right side. To a degree this was expected and there is optimism that the condition will improve, hopefully with complete movement and strength over time. It will take physical rehab, but hard work is nothing new to Marin. The preliminary pathology indicates this tumor is something beyond the ganglioglioma that was originally diagnosed. A complete pathology will be ready in 4-5 days. It's clear this is growing faster than expected and we don't understand why just yet. Dr. Hudgins said he extracted more of the tumor than he expected, perhaps 80-90%. We'll know more after an MRI tomorrow. After her recovery, Marin will begin radiation and chemotherapy treatments. The bottom line is we feel today was a very positive step toward the ultimate goal.
Thank you all for your prayers and support.

Love,

The Morrisons


Monday, August 15, 2005 1:38 PM CDT

Marin is now out of the recovery room and is in the pediatric itensive care unit. Mom and Dad had a moment with her in the hallway; Marin gaves us a crooked smile through the haze of anestesia... it was beautiful.


Earlier:

The operation was thankfully not as lengthy as anticipated and Marin did very well throughout. Once again, bleeding was an obstacle and Dr. Hudgins reports they extracted a majority of the tumor, perhaps 80-90%. Marin required one unit of blood during the proceedure. Dr. Hudgins informed us that Marin is experiencing some paralysis or weakness on her right side, which was to be expected, and there is reasonable expectation that she can recover most of her strenght of movement. The preliminary pathology indicates this is something beyond the gaglioglioma that was first diagnosed. The tumor is growing at a quicker rate than anticipated and Marin will be treated with chemo and radiation therapy beginning in the next few weeks. The bottom line is Marin has come through the surgery in good condition which is everything we were praying for... once again, we credit the power of prayer from everyone in helping us through this morning. We'll continue to send updates as we get a chance to see Marin within the next hour or so. Thanks again for all the love and support.


Monday, August 15, 2005 11:35 AM CDT

IMPORTANT UPDATE:

As of 12:30 EST, Marin is out of surgery and in the recovery room. The operation was thankfully not as lengthy as anticipated and Marin did very well throughout. Once again, bleeding was an obstacle and Dr. Hudgins reports they extracted a majority of the tumor, perhaps 80-90%. Marin required one unit of blood during the proceedure. Dr. Hudgins informed us that Marin is experiencing some paralysis or weakness on her right side, which was to be expected, and there is reasonable expectation that she can recover most of her strenght of movement. The preliminary pathology indicates this is something beyond the gaglioglioma that was first diagnosed. The tumor is growing at a quicker rate than anticipated and Marin will be treated with chemo and radiation therapy beginning in the next few weeks. The bottom line is Marin has come through the surgery in good condition which is everything we were praying for... once again, we credit the power of prayer from everyone in helping us through this morning. We'll continue to send updates as we get a chance to see Marin within the next hour or so. Thanks again for all the love and support.

~The Morrisons


Monday, August 15, 2005 11:35 AM CDT

IMPORTANT UPDATE:

As of 12:30 EST, Marin is out of surgery and in the recovery room. The operation was thankfully not as lengthy as anticipated and Marin did very well throughout. Once again, bleeding was an obstacle and Dr. Hudgins reports they extracted a majority of the tumor, perhaps 80-90%. Marin required one unit of blood during the proceedure. Dr. Hudgins informed us that Marin is experiencing some paralysis or weakness on her right side, which was to be expected, and there is reasonable expectation that she can recover most of her strenght of movement. The preliminary pathology indicates this is something beyond the gaglioglioma that was first diagnosed. The tumor is growing at a quicker rate than anticipated and Marin will be treated with chemo and radiation therapy beginning in the next few weeks. The bottom line is Marin has come through the surgery in good condition which is everything we were praying for... once again, we credit the power of prayer from everyone in helping us through this morning. We'll continue to send updates as we get a chance to see Marin within the next hour or so. Thanks again for all the love and support.

~The Morrisons


Monday, August 15, 2005 9:47 AM CDT

Our second update from the O.R. at 10:45 ET this morning reports Marin is doing well while the surgeons are making progress. Nancy and Matt are being comforted be several friends in the ICU waiting room. Neighbors Darla U., Donna A., Kelly B., and Brenda E. have been a blessing in helping us pass the anxious hours. Thanks to everyone else who may feel helpless; your concern and support means a great deal.

Love, The Morrisons


Monday, August 15, 2005 8:33 AM CDT

Our first update from the nurse this morning reports that Marin is doing well after the first half hour of surgery. Again, Dr. Hudgins told us this would be a long proceedure and we will update this site whenever we get new information. We are expecting updates about every hour.

All the best,

Matt & Nancy


Monday, August 15, 2005 7:09 AM CDT

Marin went in to surgery with Dr. Hudgins and Dr. Reisner at Scottish Rite beginning at 8am EST today. Marin was in good spirits after a fun day with her friends on Sunday, and a few hours with Mom and Dad this morning. Cami and Michael are going to school with help from our neighbor and good friend Melissa Rutledge. We've been told it will be a long proceedure and we'll be getting information on the progress about every hour or so. We'll pass along what we know as soon as we can. Thank you to everyone for your prayers, concern, and love.

The Morrison family


Sunday, August 14, 2005 8:34 PM CDT

Friends, family, well-wishers:

Well, tomorow is the big day! We had a wonderful time today hanging out with friends and attending the Waves swim banquet. They really made Marin feel special and we feel the prayers of everyone out there. Mary Ellen Warta came over to hang out with Marin and her friends and also attended the banquet. She stayed through the sweltering heat to speak about Marin and share her story with all the young swimmers.

I know at a time like this you feel so helpless. I know that feeling because I feel like that also. The power of prayer is wonderful. Thank you for all your support. We REALLY appreciate all the journal entries, phone calls, cards, etc. That really keeps us going in this great time of need. We'll keep you posted throughout the day Monday as we get information about the operation.

Thanks for your love and support,

The Morrison family


Friday, August 12, 2005 10:30 AM CDT

GOOD NEWS TODAY:

After spending the night in the hospital, Marin was released Friday morning so she can spend the weekend at home with her family and friends. She is feeling much better after getting rehydration and rest. Her surgery remains on schedule for Monday (beginning at 8 am) at Scottish Rite. Please remember Dr. Hudgens and Dr. Reisner in your prayers so that they may have ultimate strength during the operation. In the meantime, Marin will spend some quality time with Cami & Mike, Mom & Dad, and her pals. We're looking forward to the Richland Waves team party on Sunday!

Thanks to all & God bless you,

The Morrison family


Friday, August 12, 2005 2:03 AM CDT

IMPORTANT UPDATE:

Marin was admitted to Scottish Rite on Thursday after becoming alarmingly ill. An emergency CAT scan showed no bleeding in the brain, aleviating the worst fears. She was given an IV treatment for dehydration and her doses of anti-inflammatory steroids were increased. Marin responded well to the treatment and felt much better later in the evening. She's spending Thursday night in the hospital along with Nancy, and with good luck she'll be able to come home for the weekend before the Monday surgery. Marin and Cami are really looking forward to the Richland Waves Team party on Sunday, so pray for the best!!

Thanks & much love,

The Morrison family


Thursday, August 11, 2005 7:30 PM EDT

IMPORTANT UPDATE:

Marin has been quite sick today. She was taken to the emergency room at Scottish Rite hospital this evening around 6:00PM ET.

Please pray for her protection and peace to her family as they await doctor diagnosis and treatment plan for these unexpected symptoms.

Stephen Fleece
(MarinLove.com webmaster & Morrison neighbor)


Tuesday, August 9, 2005 9:15 PM CDT

Dear friends & family,

Your prayers and support are needed this week as Marin prepares to undergo surgery Monday Aug. 15 at Scottish Rite hospital in Atlanta. Doctors have determined that her tumor has grown significantly since her last examination and the pressure on her brain has reached emergency status. This is an unanticipated development after the pathology on the tumor cells earlier... as Dr. Hudgens put it, "a ganglioglioma is not supposed to act this way." Both Dr. Hudgens and Dr. Reisner will perform the surgery Monday, please pray for them as well. We thank you all for your continuing love and support.

May God be with you,
The Morrison family


Thursday, August 4, 2005 1:55 PM CDT

Hi Everybody and thank you for your continued concern for Marin and our family. We'll be needing a little extra prayer support over the next several weeks as Marin's condition has taken a downturn. In recent weeks she has been experiencing a number of symptoms and side effects that have been troubling. Although she was able to compete (very well!) in the Georgia State Long Course Championships last weekend, Marin has been feeling an increase in dizziness, fatigue, and numbness in her right foot. On Wednesday she underwent a CAT scan and an MRI in Atlanta which showed swelling around the tumor. Right now, she is scheduled to undergo more brain surgery on August 15th. We are still processing test results and consulting with surgeons in Atlanta and Seattle to determine the best course of treatment. We'll keep you posted on the details as the date grows closer. As always, we thank you for your love and support.

Love, The Morrison family


Monday, July 25, 2005 12:51 AM CDT

Hi Everybody,

Marin was seen by doctors at the Mayo Clinic in Minnesota for three days last week. The opinions were similar to the diagnosis we've heard at both Children's Health Care of Atlanta and at Children's Hospital in Seattle. The consensus is that more surgery is likely the necessary next step. Chemo and radiation don't appear to be proper forms of treatment for this tumor, and that's actually good news. It means this type of tumor is not an agressive cancer that chemotherapy targets. We will continue to monitor the tumor with another MRI in the next few weeks, then consider the recommendations of the surgery team. We're discussing methods that would be most effective in reaching the dangerous area of this growth while limiting the risk to healthy areas of her brain that control speech and motor function.
In the meantime, Marin remains active and is enjoying her summer. She's getting ready for the state long course swim championships. She hasn't been in peak condition, but she's been competing very well and having a lot of fun. Thank you all again for your wonderful support, prayers and concern.

Love, The Morrison family


Thursday, July 14, 2005 1:04 PM CDT

Hi everybody, here's the latest:

On Wednesday 7/13 Marin was seen at Children's Hospital in Seattle for a second opinion and further evaluation. The news was fairly positive and on-line with what we've been hearing from her care team in Atlanta. The bottom line is that more surgery appears to be likely, but the slow growth of the tumor allows everyone time to make the best possible decision and formulate the most effective treatment. Next week, Marin will travel with Nancy to the
Mayo clinic in Minnesota for a third opinion. We thank you all for your care and support... we feel each and every one of your prayers.

Love,

The Morrison family


Thursday, July 14, 2005 1:04 PM CDT

Hi everybody, here's the latest:

On Wednesday 7/13 Marin was seen at Children's Hospital in Seattle for a second opinion and further evaluation. The news was fairly positive and on-line with what we've been hearing from her care team in Atlanta. The bottom line is that more surgery appears to be likely, but the slow growth of the tumor allows everyone time to make the best possible decision and formulate the most effective treatment. Next week, Marin will travel with Nancy to the
Mayo clinic in Minnesota for a third opinion. We thank you all for your care and support... we feel each and every one of your prayers.

Love,

The Morrison family


Thursday, July 7, 2005 10:45 AM CDT

Hi friends and family,

Well, the news is that Marin's tumor is growing. The oncologist called yesterday and gave us this information. She didn't go into great detail and said she would call back today once she communicates with the neurosurgeon and other doctors. We don't know what or when they desire to proceed with procedures. We are definately still going to the Mayo clinic on the 20th and hopefully a doc in Washington. Marin continues, as always, upbeat and dealing with the news positively.

Please keep us in your prayers and pray that God will lead us to the right situation which will heal Marin.

Thank you for your thoughts.

Most fondly,
Nancy, Marin, and family


Tuesday, July 5, 2005 7:28 PM CDT

Hi Everybody,

Marin, Mom and Mike spent toooo long on Tuesday evening having the latest MRI performed. Marin's team of doctors will evaluate the results at some point Wednesday and call us to consult. This MRI will be compared to the one taken last month, and a course of treatment will be advised from there. Please say strong prayers on this one as we are hoping for the best results possible. We'll update you as soon as we have news to report. Thanks again for all your love, care and support.

The Morrisons


Wednesday, June 29, 2005 9:33 PM CDT

Hi Everybody,

We continue to "wait and see" as Marin's next MRI appointment approaches on July 5th. At that time, a comparison picture should give her doctors a better idea of how the remainder of the tumor is reacting. Marin did suffer two mild seizures this week while swimming, and on Tuesday she went in for an emergency CAT scan. The good news is that the scan showed nothing to be additionally concerned about... the neurologist said it's fine for her to continue swimming right now. Thanks again to everyone for your heartfelt thoughts and prayers during this stressful time, and please remember our cousin Liz McIntyre in your prayers as well. Thank you!!

Love,
Marin, Nancy, Matt, Cami, and Mike


Thursday, June 23, 2005 6:34 PM CDT

Hi friends and family,

Thank you for checking and writing in Marin's guestbook. We had a meeting on Tuesday regarding the MRI results. After much examination of the cells that were removed, the chances of Marin's tumor growing ranks in the less than 1%!! What this means is that, 1 - either Marin has really bad luck and is in the less than 1%, or, 2 - the tumor is not growing. The doctors are now right on the fence. Not one of the docs we spoke with on Tuesday could confirm or deny if the tumor has grown.

Their plan is to take another look on July 5th with a second MRI and compare that test with the one from June 13th. They would be able to compare the two to determine if the tumor has changed. We all need to pray real hard that it is not growing.

If it is growning, they will do surgery again followed up this time with Chemo.

We were actually happy with the meeting because there is a 50/50 chance out there it is not growing. Marin is happy and forever an optimist. I am feeling pretty good right now and hope, of course, for the best outcome!!!

Thanks for all the love and support.

A big hug, Nancy, Marin's mom!


Thursday, June 16, 2005 6:39 AM CDT

Hi! This is Marin's mom Nancy. We have been enjoying our summer with beach a beach vacation to Tampa and a lot of neighborhood swim meets.

Marin had an MRI on Monday night. The preliminary thoughts on it don't appear to be very encouraging. The tumor is larger than they originally thought. This either means that they couldn't see the size of it because of the veins that were clouding their view, or, it is growing.

We have an appointment next tuesday to discuss what further is planned based on this new information. I would appreciate all your prayers and support these next few weeks as hopefully, they are incorrect in their diagnosis.

I am arranging a trip for Marin and I to go up to the Mayo clinic in Minn. where they treat teens her age with brain tumors. Perhaps they can give us some more encouraging news.

Marin's birthday is Sunday, Father's Day. Lets all pray for a great birthday for Marin as she turns 15.

Thanks for all the love and support.

Nancy, Marin's mom.


Wednesday, June 8, 2005 10:51 AM CDT

Hi everyone. Swimming is going great. I had a swim meet last weekend and felf like I did pretty good. My strengh felt good and I actually wasn't exhausted after the 200!! Summer league has started and of course is fun. Last week we went to Waffle House at 11:30 at night after the meet. I am proud that I finished all my school work, including my PE final last wednesday and came out with good grades!

We had swimmers from Florida stay with us over the weekend for the Swim Atlanta meet and now my friend Lizzie is here visiting. Next monday is the MRI. I have had a few dreams about the outcome which make me nervous. They were only dreams though so I continue to pray that I am good.

Thanks for all the love and support. I tend to be a pretty quiet person so this is my way to see all those that care. I hope all are doing great.

much love, Marin


Thursday, June 2, 2005 7:32 AM CDT

Happy summer friends and family,

We just got back from a great time in Florida. First we went to St. Pete's in Tampa and hung out at the beach for a few days. I love the beach more than anything!! My sister and I floated around in the water for several hours. We made up goofy little performances and practiced handstands!! My little brother made a lot of various sand castles and I think enjoys the beach as much as I do.

From there we went to Disneyworld and enjoyed ourselved for two days. I love all the rides at Magic Kingdom! There is a new ride at Epcot center that is like you are hang gliding. It was awesome!! I have already started working on my summer tan! I do have one more final to take this morning for P.E. After that I will be done with 9th grade!!

I hope everyone is happy and healthy. I still feel all the love and support and want everyone to know how much you have touched my life! Have a great day.

Much love,
Marin


Saturday, May 21, 2005 1:39 PM CDT

Good afternoon,

Life is great. I swam that swim meet last Sunday. I did o.k. Not exactly the best swim but I felt pretty strong and did'nt have any double vision after the race, yea! My coach and I decided not to do any of the 200's quite yet. We stuck with the 100's and the 50's.

This week we (myself and all those who are helping me!!) are working hard on finising school by next Wednesday. I am motivated because on Thursday my family has a Florida vacation planned to celebrate my finishing. Hanging on the beach is enough motivation for anyone!

I am also excited to start summer swim league. We took our team photo today. Some of my great friends from Swim Atlanta are joining me to swim on the Richland team. We are going to do some serious damage at the county meet!!

I got results from all the psych test they have been doing on Wednesday. Nothing new really. Processing is very low, as well as audio learning. I scored best on visual learning and math, both are from the right side of my brain. The left still have quite a bit of healing to do.

Happy day to all my dear visitors and loved ones

A big hug, Marin


Friday, May 13, 2005 3:51 PM CDT

Hi!! Sorry I haven't been adding journal entries. I have been trying to get through all this school work! I made it through the finals, yea. The last few days have been beautiful! I went down to the pool and did some work while lying in the sun. I love summer! The warm air, swimming all the time, and hanging out with my friends. Life is good.

I hope this journal entry finds all who are reading it happy and healthy. If anyone wants me to pray for them, I would love to! Thanks again for keeping me in your thoughts and prayers!

Love, Marin


Saturday, May 7, 2005 9:58 PM CDT

I have been studying away for biology now. It is a lot of information to remember. My swimming is going well. During practice this morning, I got a little double vision for about 10 seconds. It scared me but it went away quickly. My mom said she will call the doc monday morning. Today was a beautiful day!! My mom's friend, Tanya K. has been visiting from Dallas, Texas and they have been having a great time.

I hope all the moms out there have a great day tomorow!! Here's to all the great moms and HAPPY MOTHER'S DAY!!

Love, Marin


Monday, May 2, 2005 11:29 AM CDT

Yea! I just got home from finishing my first "end of course test." It was o.k. I thought it was my finals but now someone told me we have another set of finals! I guess, like everything else, I'll say bring it on!

I have more doctor appointments tomorow and Wednesday. Then Thursday I have a math exam. What gets me through these days is knowing that I get to go to swim practice after. I hope everyone is doing as good as I am. Here's to angels looking out for us all.

Love,
Marin


Saturday, April 30, 2005 12:59 AM CDT

Hi! Today is Saturday and rainy. It's probably a good thing. I learned on Thursday night from my home bound teacher, Coach Weaver, that I have to take finals with the rest of my class next week!! O.K., that means all I will be doing from here on out is studying!! Maybe a little prayer would help too.

Swimming is going great!! Coach Chris let me race some of my friends at practice yesterday and I felt pretty good in the water. I think I am going to be able to race good again, yea!

Love, Marin


Wednesday, April 27, 2005 10:58 AM CDT

Wow. We have been lazy. I got used to my mom signing in for me so I really don't pay attention to my daily journal, I just read all your awesome notes. Then I looked and saw that the entry was over a week old!!!

I am doing great. I work hard everyday doing my school work and attending swim practice. I love every new journal entry!! I keep dreaming that I will join the ranks of all you awesome swimmers. I am going to race in the middle of may and am curious to see how I do.

Since I have been home I have gotten the new job of Rosey's, our dog, walker. Now I see that it's constant to take care of animals! My sister had a birthday over the weekend and now she is 11!

We are feeling great at my house and send our love to all of you.

Love,

Marin


Tuesday, April 19, 2005 11:09 AM CDT

Good afternoon friends and family,

Today we are once again at the Aflec Cancer center at Scottish Rite doing more testing. Marin has a great attitude and is looking forward to learning how to compensate for her memory loss and other minor recall problems. If you see her or speak with her on the phone, please don't be offended if she doesn't remember your name. As her brain heals, this is a problem that she will encounter. She often forgets my name so don't feel bad.

I taught one of my pilates classes today after being off for a couple of months. It felt great!! I realize how important it is to keep yourself in shape and doing things for yourself. My spinning classes are always great and I love every time we have class.

We hope this finds all of you well. We are now praying for each person that has written in our guest book and have touched our lives. Everyone has been such a blessing!!!!!

Have a wonderful, glorious day,

A big hug to all,

Nancy, Marin and gang


Saturday, April 16, 2005 7:35 AM CDT

Good morning. Yea! It's a new day. We were all kind of tired yesterday. I think the testing the day before got to us all. Anyway, Marin is swimming today at Swim Atlanta with Chris her coach and her swimming buddies. It appears like it will be a perfect day so planting flowers is in the forcast. We hope everyone has a wonderful Saturday.

Much love from all,

Nancy, Marin and family


Thursday, April 14, 2005 3:11 PM CDT

Good afternoon. Marin and I have been at the Children's Health Care center, Scottish-Rite since 8:00 this morning. Today Marin is undergoing various phycoanyalsis test determining various strengths and weeknesses that have developed after the surgery. She must be exhausted because I am and I've just been sitting here!
Nancy

Hi! This is Marin. I am done today with testing, yea! It went good. I definately think my brain needs a rest though. Maybe my mom will rent me a good movie to watch tonight. I hope everyone is as happy as I am.
Much love, Marin


Tuesday, April 12, 2005 2:23 PM CDT

Thanks for checking my website!! I have been praying for all of you that have been signing my guestbook who have faced similar challanges like mine! It's amazing when you go through something like this, you learn to be thankful for each and everyday, every friend, and every experience. Hopefully that going through this at 14 will make me a stronger person the rest of my life!!

I have studying like crazy trying to get my school work caught up. Today my friend, Jordan, and myself are going to the library to work on research papers that we both have do. I enjoy doing my work at home and am still trying to get the much needed rest. I am of course, making time for swimming everyday!!

I hope everyone has an awesome day!!
A cute quote that I read

"How important it is for us to recognize and celebrate our heroes and she-roes!! -Maya Angelou

Lots of Love,

Marin


Saturday, April 9, 2005 9:37 AM CDT

Family and friends:

We have been on spring break this week and doing not much of anything. We went to the Rutledge's cabin at the beginning of the week. We finally made it to the Dillard house after living here for almost five years! I think once every 5 years is about what you need. The home town southern meal really weighs on you!

Marin had a highlight of her month yesterday. Mary Ellen Blanchard met with her at Swim Atlanta yesterday and they swam together for an hour. She gave her a medal she had won at Nationals for the 200IM, first place, when she was on the Swim Atlanta team. We are still in shock at her kindness. Marin keeps saying what a wonderful time she had. It's wonderful for us to see such kindness around the swim community and are thankful for each and everyone of you from the bottom of our hearts!!

Marin and I are going to try to start e-mailing some of you back the best we can. We still appreciate hearing from each and everyone of you with words of encouragement, advice, jokes, etc.

Here's to an awesome day!!!!!

A big hug, Marin, Nancy, Matt, Camlyn, and Michael


Monday, April 4, 2005 10:45 AM CDT

Hi! This is Marin. I have been working hard on all my homework trying to catch up. My teachers and swim coaches have been so awesome in helping me!! Thank you everyone. We are getting to go to the mountains with camy's friend Jennifer Rutledge. We are going to go out to dinner and then hang out at their cabin. Yea. We'll be back tomorrow night.

Swimming is going great. I love it!!

All my love,
Marin


Friday, April 1, 2005 8:16 PM CST

It's Friday night and we are all sitting here enjoying our family. ( with the exception of Michael jumping from person to person!) Marin went to practice at Swim Atlanta and Chris took them out for ice cream. Her team won't be praticing this next week because of spring break but she will be swimming trying to catch up.

I have been sitting here for the last hour reading past notes once again and I can't tell each and everyone of you how touched I am from all of your kindness. I actually have been feeling guilty on how we can possibly return all the love and kindness everyone has given us over these last weeks. Please know our family is there for everyone of you the way you have all been there for us. It's truely a wonderful world, isn't it.

Here's to a restful weekend and God bless!

Nancy, Matt, Marin, Camlyn and Michael


Thursday, March 31, 2005 9:27 AM CST

Good morning friends and family.

Today it is raining, raining, raining! It actually look pretty from the window though. Marin is doing great. She's back to doing school work but from the house. Coach Weiver is her homebound teacher! She is anxious to catch up in her work but tires easily. Her reading has been effected however, there is a possibility that it will restore over time.

We were soooo blessed yesterday with, once again, numerous people helping us out. Coach Puckett from Brookwood High School met Marin and Coach Weiver yesterday at Swim Atlanta to help her with biology. They both donated over two hours of their time helping her out. We can't be thankful enough. If that wasn't enough, when we got home Nancy's friend, Carol Ann McLeroy sent a cleaning crew over to our home and cleaned up the bomb that has exploded over the last several weeks! My house has never been so clean, ever!! We continue to see several of you who have been so supportive and helping, out and about. We are soooo appreciative of everyone and every thing that all of you have done, sent, and prayed for.

Here's to a fantastic day.

Nancy, Matt, Marin, Camlyn, and Michael


Sunday, March 27, 2005 8:43 AM CST

HAPPY EASTER!!!!!

This is a day of pure celebration! God moves mountains, rejoices great things, and definately heals the sick! He also has great compassion and has given so many of you this wonderful gift as well. Each one of us has truely been effected by Marin's journey and her strength has come from all of your compassion for her.

Celebrate life today. Hugs those around you that you care about and thank God for our gift of life, family, and friends each and everyday.

Christ has shown through so many people this last month and we can't do anything but smile and be thankful!!

Have a blessed day, Nancy, Matt, Marin, Camlyn, and Michael!

(Don't eat too much candy. Michael has already had about 100 jelly beans. Great breakfast for a 3yr. old!)


Friday, March 25, 2005 5:05 PM CST

Good Friday...
We were gifted with a spectacular day in Atlanta to enjoy this day of reflection. Marin's progress continues to be wonderful, and she's celebrating her first day back swimming with her team at SwimAtlanta. She'll be limited in the scope od her physical activity for several weeks (no weight lifting!) but just being back among her friends is great therapy. Marin started her home schooling to get caught up with the hopes of being able to return to school for at least a few weeks before the end of the year. In a nice twist, Jenny Weaver, her swim coach at Collins Hill, will be her homebound instructor. Her first few lessons showed that she has a long way to go before she's fully healed. Reading and other cognitive exercises are not coming along as quickly as Marin's swimming. We've been enjoying all the visitation from family, friends and neighbors and the notes of encouragement as well as gifts and donations are uplifting and humbling. A special thanks today to the lovely young lady representing the Cental Gwinnett High Swim Team Booster Club who dropped off a large gift bag and donation from the club. Thank you all for kindness and prayers. Please have a wonderful Easter weekend.

Love, The Morrison family


Tuesday, March 22, 2005 10:31 AM CST

Good afternoon! We are having a great day today. Marin's story is in the Atlanta Journal Constitution today. She is feeling great and continues to gain strength daily. She is anxious to start her school work and is waiting for her homebound teacher to call today. She also is anxious to talk with her friends who went to the Florida sectionals to find out how they did. Matt said that Kathleen Hershey was a true star, breaking Nicole Haislett's record as well as scoring the high point at the meet. Marin is so excited for her!! It's wonderful when great things happen to great people.

We want to once again thank all of you for your continued support and prayers. We are smiling in the Morrison household thanks to each and everyone of you!!

Happy day, Nancy, Marin, Matt, Michael, and Camlyn


Sunday, March 20, 2005 3:28 PM CST

Hi! O.k., I have been feaking out because our computer has been down! Matt was out of town until today so I couldn't read or update. This has been my source of comfort and communication and it's been hard without out it for three days! Marin has been updating herself on all the messages that were there till Thursday so she got a lot of catching up done.

We are continuing to rest, watch movies, and swim. Marin seems to sleep a lot better than she was a few days ago and is getting stronger every minute. Her positive attitude and constant smile are so go to have back in the house. She is also a great infulence with the junk food!! I have never seen anyone with so much disipline. She tells me her 10 + pounds she lost are going to regained with solid muscle, not fat!

Those of you who enjoy junk food, and live close by, please stop by for some food and fellowship! We are welcoming visitors now and welcome all you messages too.

On this Palm Sunday we have sooo much to thank God for!!

Most fondly, Nancy, Marin, Matt, Cami, and Michael


Thursday, March 17, 2005 7:20 AM CST

Hi! Yesterday was a big day. I went to Swim Atlanta and got in the pool and swam some laps!! I also got to briefly see some of my friends and it was great. Today, Thursday, a lot of them are going to a swim meet in Orlando, FL. I was suppose to be going. That's o.k. though, I'm here hanging out with my family.

Coach Weiver from Collins Hills came by and gave me my trophy, plack, and medals from the past season.

The highlight of my day is when I received a package from Mark Henderson. In it was his Olympic 1996 jacket and an olympic watch. He wrote me a wonderful note that made me cry. When I get to the olympics, I will send him something of mine! Happy day!!

Love, Marin


Tuesday, March 15, 2005 7:32 PM CST

We are going to try to return to at least two updates per day. The last few days have we have been lazy but enjoy just sitting and reading sooo much!!

Today we went back to the doc's to get Marin's staples and stitches out. We then spent several hours at the Aflec cancer center. Even though Marin's tumor is considered binine, the cancer center monitors it due to area of the brain and the fact that it may grow again. They are now just watching it for three months. Due to the vascular area that it is in, it is hard to determine exactly what part of the tumor is left and what steps should be taken. The brain will heal in about three months at which time they will do another MRI and then determine if radiation or kemo is necessary. We, of course, are going for the miracle that the rest of the tumor that is left will shrink up and go away!! So, don't stop praying now, because we're just getting started.

Marin remains extremely positive, thankful for each and everyone of you, and excited to return to swimming. The doc's told her today she is a recipiant for the Make a Wish foundation and perhaps she would like to go to the Olympics in 2008. Her response was, "I will be in the Olympics in 2008!" That's my girl.

May we all have a restful night tonight and our thoughts and prayers and there for each one of you as well.

Most fondly, Nancy, Marin, Matt, Camlyn, and Michael


Monday, March 14, 2005 8:23 PM CST

Another great day has gone by! We discovered the deal at Blockbuster that you can rent as many movies as you want for a month so we are now on a movie marathon. It's fun!
Marin got to get out of the house today and went to visit her swim coach from Swim Atlanta, Chris Davis. Her Jr. National group is leaving on a trip to Orlando on Thursday and, needless to say, she won't be going. She wishes she could go but I think is just going to try that much harder to make an even bigger mark next year. She also received a visit from a writer from the Gwinnett Daily Post who would like to do a personal interest story.

Our little Marin continues to grow stronger. She is still continously smiling and enjoys more than you have any idea all the journal entries, cards, visits, gifts, etc...!!!

Each and everyone of you are so special that you have taken something so scary and have helped her focus on the positive. All I can say is Praise God! Here's to being thankful for every moment.

A big hug, Nancy, Marin, Matt, Camlyn and Mike!


Monday, March 14, 2005 3:20 AM CST

Hi! I am still smiling like I was since before the surgery. I think God really took care of me. I can't believe all the awesome people that have said "hi" to me and wished me well!! I feel like there is two ways to look at things; one way is that when a bad thing happens to you, it can knock you down, or, you can use it as a challange to be better than you were before. I faced this as a challange, and like I said before, was excited to be presented with it.

I am winning. Every hour I feel a little stronger. I know that all of your prayers got me here. I can't wait to jump into the pool and feel the water trickling over my body. This is definately a race I am winning and I hope the rest of you watch out because here I come!

Much, much, much, much, much love and thanks,

Marin


Monday, March 14, 2005 3:05 AM CST

I hope everyone had as nice a weekend as we did at home with Marin. Her recovery continues at a remarkable pace. We enjoyed the opportunity to get out in the sunshine Sunday as Marin worked on some rehab exercises at the neighborhood tennis courts. She is walking steadier and her strength and stamina is improving. She is in control of all her motor skills, even able to play a soft game of catch with a tennis ball. While she's not quite ready to take a lot of visitors, she has enjoyed seeing a few friends and neighbors who've dropped by. The notes in her guestbook on this web site continue to be an inspiration, and your prayers have pulled us through. Thank you all.

Love, The Morrison family


Sunday, March 13, 2005 7:25 PM CST

Hi! I am still smiling like I was since before the surgery. I think God really took care of me. I can't believe all the awesome people that have said "hi" to me and wished me well!! I feel like there is two ways to look at things; one way is that when a bad thing happens to you, it can knock you down, or, you can use it as a challange to be better than you were before. I faced this as a challange, and like I said before, was excited to be presented with it.

I am winning. Every hour I feel a little stronger. I know that all of your prayers got me here. I can't wait to jump into the pool and feel the water trickling over my body. This is definately a race I am winning and I hope the rest of you watch out because here I come!

Much, much, much, much, much love and thanks,

Marin


Saturday, March 12, 2005 9:07 PM CST

Saturday night seems like old times with Marin home on the couch watching the Disney channel along side Cami and Michael. Perhaps the most difficult aspect of her recovery right now is the realization that she won't be 100y tomorrow morning. Her progress is steady, though, and she'll be better before she knows it. Marin really enjoys hearing all the notes of encouragement and we're all inspired by the testimonials of so many contributors who've endured difficulties in their lives, including brain tumors, and can still reflect on the positive. This community we've shared over the last coupled of weeks has not only lifted Marin and our family through this crisis, but I thoroughly believe it's enriched the lives of everyone who's been a part of this web page. Thank you all for sharing yourselves with us, and keep spreading the power of love and prayer.

Love,

The Morrison family


Saturday, March 12, 2005 9:07 PM CST

Saturday night seems like old times with Marin home on the couch watching the Disney channel along side Cami and Michael. Perhaps the most difficult aspect of her recovery right now is the realization that she won't be 100y tomorrow morning. Her progress is steady, though, and she'll be better before she knows it. Marin really enjoys hearing all the notes of encouragement and we're all inspired by the testimonials of so many contributors who've endured difficulties in their lives, including brain tumors, and can still reflect on the positive. This community we've shared over the last coupled of weeks has not only lifted Marin and our family through this crisis, but I thoroughly believe it's enriched the lives of everyone who's been a part of this web page. Thank you all for sharing yourselves with us, and keep spreading the power of love and prayer.

Love,

The Morrison family


Saturday, March 12, 2005 8:46 PM CST

Saturday night seems like old times with Marin home on the couch watching the Disney channel along side Cami and Michael. Perhaps the most difficult aspect of her recovery right now is the realization that she won't be 100y tomorrow morning. Her progress is steady, though, and she'll be better before she knows it. Marin really enjoys hearing all the notes of encouragement and we're all inspired by the testimonials of so many contributors who've endured difficulties in their lives, including brain tumors, and can still reflect on the positive. This community we've shared over the last coupled of weeks has not only lifted Marin and our family through this crisis, but I thoroughly belive it's enriched the lives of everyone who's been a part of this web page. Thank you all for sharing yourselves with us, and keep spreading the power of love and prayer.

Love,

The Morrison family


Saturday, March 12, 2005 7:31 AM CST

G'day,

Make that GREAT day! As Marin sits at the breakfast table eating cheese eggs with her brother and sister, we are thanking God and counting our blessings. Camlyn and Michael are excited to have their big sis home, and the joy on Marin's face is unmistakeable. It's amazing to realize that just a week ago she was going in for her second brain surgery in two days. If anyone doubts the power of prayer, let me at 'em! Marin continues to improve and is able to go up and down stairs to sleep in her own bed. She's not quite ready for visitors as she remains weak and tires easily, but she wants badly to see her friends, and we'll be able to do that soon. Thanks again to all the wonderful friends, so many of whom we may never meet, who've helped all of us through this difficult time. Keep on spreading the good will!

Love,

The Morrison family


Friday, March 11, 2005 2:10 PM CST

WELL... look what love and the power of prayer can accomplish!! Today we received very good news regarding Marin's pathology report. The preliminary diagnosis is that Marin's tumor consisted of a form of *ganglioglioma, and she'll likely NOT have to undergo chemotherapy or radiation treatment. (*Her oncologist advised NOT looking up ganglioglioma on the internet, as you'll find too much information, and outdated information, that mostly won't apply to Marin's case).
Marin looks terrific... her speech and strength are much improved. After she walked to and from the physical therapy room without assistance, and performed very well for her therapist, we were told that Marin could go home with us TODAY!! We're thrilled to be taking her home to Cami, Michael, and Gramma Shirley (although it will take some time to sign out, and load the car with all the flowers, balloons, posters and get-well cards... thank you!).
We continue to be amazed and humbled at the outpouring of support from around the world. Marin's guestbook now includes entries from some of the greatest swimmers in Olympic history, and equally as impressive, all of the finest relatives, friends and neighbors a family could ever hope to be be blessed with. We thank you all for your uplifting support and inspiration.
We also ask today that you keep our good friend and fellow swim parent Jill Tweedy in your prayer circles. Frau Tweedy underwent breast cancer surgery yesterday, and she needs all our support. We pray for her safety and complete recovery, and for the comfort of the Tweedy family, including Brittany and Eric who swim with Marin at SWAT and on the Collins Hill High team.
Thanks again for your wonderful love and friendship.

Love, The Morrison family


Thursday, March 10, 2005 2:13 PM CST

Today has been a day of slow but steady progress. Nancy's second overnight stay was as sleepless as her first, while Matt went back to work on the a.m. shift. Marin remains on a liquid diet, but her appetite is increasing and she drank a lot during the night. In the morning, she had her first shower in several days and it's made her feel great. Marin also had her first session with a physical therapist and it was a good starting point (if you want to race her, now's the time... she's only gonna get faster!). Marin has all her functions but she's tired and weak. She responded perfectly to all her commands, and walked slowly through the hallways. Her breathing's a bit shallow as she continues to withdraw from medications, but overall she's rather steady and as always she's in good spirits. It will still be some time before she can take visitors, but Nancy has decorated her room with all the posters and get well cards that friends have been sending.
Marin is amazed that it's Thursday already (that'll happen when you sleep for four days) and she's thrilled that so many people have been sending their love and support. We believe your prayers have made all the difference, and please keep them coming because we're going for a miracle. We haven't received the pathology report yet and we're praying for the best news possible. We'll keep you updated. Thanks again, everybody!

Love,

The Morrison family


Thursday, March 10, 2005 2:00 PM CST

Today has been a day of slow but steady progress. Nancy's second overnight stay was as sleepless as her first, while Matt went back to work on the a.m. shift. Marin remains on a liquid diet, but her appetite is increasing and she drank a lot during the night. In the morning, she had her first shower in several days and it's made her feel great. Marin also had her first session with a physical therapist and it was a good starting point (if you want to race her, now's the time... she's only gonna get faster). Marin has all her functions but she's tired and weak. She responded perfectly to all her commands, and walked slowly through the hallways. Her breathing's a bit shallow as she continues to withdraw from medications, but overall she's rather steady and as always she's in good spirits. It will still be some time before she can take visitors, but Nancy has decorated her room with all the posters and get well cards that friends have been sending.
Marin is amazed that it's Thursday already (that'll happen when you sleed for four days) and she's thrilled that so many people have been sending their love and support. We believe your prayers have made all the difference, and please keep them coming because we're going for a miracle. We haven't received the pathology report yet and we're praying for the best news possible. We'll keep you updated. Thanks again, everybody!

Love,

The Morrison family


Wednesday, March 9, 2005 7:23 PM CST

Wednesday we witnessed the power of all our prayers and the grace of God. Marin was released from the intensive care unit and is resting now on the first floor at Scottish Rite hospital. She is regaining all of her senses after four days under strong sedation and she's speaking and moving well. Heck, she even got up to walk to the bathroom! All of this is amazing as we consider the progress she's making every day. She's still rather weak and drifts in and out of sleep, but her her improvement will only accelerate as she begins eating food. She started taking juice this morning, and by late in the day she was eating fruit. Imagine, someone who's daily calorie intake rivals that of the Oakland Raiders, and she hadn't had anything to eat since last Thursday. For now, Marin won't be taking visitors, but we'll let everyone know when she's feeling better. All of the flowers, baloons, cards and posters that friends dropped off over the last two weeks are decorating her room giving her a comfortable feeling. Thanks again for all the love and support.

Love, The Morrison family

ALSO, please remember our Uncle Phil Buckminster in your prayers along with our Aunt Nell. Uncle Phil passed away Monday at the age of 85. He was one of the finest "out-laws" that ever married in to the Angus Mack clan. RIP Uncle Phil. Love, Matt


Wednesday, March 9, 2005 4:11 AM CST

There are many, many ways to be awakened when you're bunking in a pediatric Intensive Care Unit, and I experienced several of them over the past week; the annoying array of bells and whistles that resemble a sound-check from a concert of bad cell phone ringing options; the distress of a child somewhere else on the floor; the loud laughter of the night crew of nurses in a rare moment of calm; the 4 am invasion of a mobile x-ray crew ambushing your room with no regard for the parent sleeping on the couch; and my personal favorite: an amusing stream of coherent sleep-talking coming from our daughter as she recovers her senses, even while asleep. Marin was very animated overnight in her dreams, speaking clearly for the firs time since the ventilator was removed 12 hours earlier. The last of her suppressants is wearing off, and while I'm not sure of the context of her conversations, she was laughing and and having fun with many of her friends while floating through snooze-land.
It's been a good night, and we hope to hear she'll be out of the ICU later today. Please pray for this, and a more comfortable sleeping arrangement in the next room for Dad.

~Love,
Matt, Nancy & family

ALSO, please remember our Uncle Phil Buckminster in your prayers along with our Aunt Nell. Uncle Phil passed away Monday at the age of 85. He was one of the finest "out-laws" that ever married in to the Angus Mack clan. RIP Uncle Phil. Love, Matt


Wednesday, March 9, 2005 3:18 AM CST

There are many, many ways to be awakened when you're bunking in a pediatric Intensive Care Unit, and I experienced several of them over the past week; the annoying array of bells and whistles that resemble a sound-check from a concert of bad cell phone ringing options; the distress of a child somewhere else on the floor; the loud laughter of the night crew of nurses in a rare moment of calm; the 4 am invasion of a mobile x-ray crew ambushing your room with no regard for the parent sleeping on the couch; and my personal favorite: an amusing stream of coherent sleep-talking coming from our daughter as she recovers her senses, even while asleep. Marin was very animated overnight in her dreams, speaking clearly for the firs time since the ventilator was removed 12 hours earlier. The last of her suppressants is wearing off, and while I'm not sure of the context of her conversations, she was laughing and and having fun with many of her friends while floating through snooze-land.
It's been a good night, and we hope to hear she'll be out of the ICU later today. Please pray for this, and a more comfortable sleeping arrangement in the next room for Dad.

~Love,
Matt, Nancy & family


Tuesday, March 8, 2005 4:39 PM CST

Yes indeed, Sleeping Beauty* is waking up. Marin van Winkle's** progress today has been amazing. Her care team removed her breathing tube around 3:30 est this afternoon, and she took it in stride. Marin was quickly communicating with her doctors and nurses and when asked if she wanted to see her Mom & Dad, Marin responded with an emphatic "YES!" Her beautiful smile greeted us (and Uncle Ron) as we joined Marin in her room. Over the next several hours, Marin smiled and slept; struggled to regain her speech and wept. A truly joyous afternoon for all of us. By this evening, she was speaking more clearly, although she remains a bit confused as her body continues to shake off four days of strong medication. She'll likely be in intensive care for another day, then further on her way to recovery. It's a pleasure to share this good news with all of you, and Marin will be reading her guestbook again in a few short days (she has a lot of catching up to do). More soon.

Love, The Morrisons

*credit Pam K.
**credit Robin


Tuesday, March 8, 2005 4:19 PM CST

Yes indeed, Sleeping Beauty* is waking up. Marin van Winkle's** progress today has been amazing. Her care team removed her breathing tube around 3:30 est this afternoon, and she took it in stride. Marin was quickly communicating with her doctors and nurses and when asked if she wanted to see her Mom & Dad, Marin responded with an emphatic "YES!" Her beautiful smile greeted us (and Uncle Ron) as we joined Marin in her room. Over the next several hours, Marin smiled and slept; struggled to regain her speech and wept. A truly joyous afternoon for all of us. By this evening, she was speaking more clearly, although she remains a bit confused as her body continues to shake off four days of strong medication. She'll likely be in intensive care for another day, then further on her way to recovery. It's a pleasure to share this good news with all of you, and Marin will be reading her guestbook again in a few short days (she has a lot of catching up to do). More soon.

Love, The Morrisons

*credit Pam K.
**credit Beth M.


Tuesday, March 8, 2005 12:04 AM CST

We are experiencing pure JOY today as Marin slowly wakes from her slumber. As the care team rolled back her medication, Matt and Uncle Ron were tickled with Marin's first signs of her awareness. She struggled mightily to open her eyes... just a little... and was moving a little from side to side. Marin was also trying to sit up in bed. Then when Nancy arrived around 12:30 est, and Marin heard her voice, she lit up the room with her first smile in four days!! Since then she's smiled some, cried some, and entertained us with her spirited effort to wake-up (something she never seemed to want to do on typical Tuesday before this!). We expect to have her off the ventilator at some point this afternoon and we're riding the wave of all your love and prayers. Thanks again everyone.

Love,

The Morrison family


Tuesday, March 8, 2005 8:50 AM CST

G'day ~
Marin had a good night with stable vital signs and the only issue was a slight fever. After a positive CT scan this morning, it was determined she would be taken off the ventilator at some time today. The care team began weaning her off more of her sedatives to wake her from a four-day nap. Around 9:30 this morning, she began moving a little bit and tried to open her eyes when Matt spoke to her. This process of waking up may take a couple hours, and if all goes well, they'll remove her from the assisted breathing machine. So far it's been a great morning and we'll update you with further developments as they occur.

Much love,

The Morrison family


Tuesday, March 8, 2005 8:43 AM CST

G'day ~
Marin had a good night with stable vital signs and the only issue was a slight fever. After a positive CT scan this morning, it was determined she would be taken off the ventilator at some time today. The care team began weaning her off more of her sedatives to awake her from a four-day nap. Around 9:30 this morning, she began moving a little bit and tried to open her eyes when Matt spoke to her. This process of waking up may take a couple hours, and if all goes well, they'll remove her from the assisted breathing machine. So far it's been a great morning and we'll update you with further developments as they occur.

Much love,

The Morrison family


Monday, March 7, 2005 3:45 PM CST

Monday has been a good day for Marin's recovery. After some stressful edpisodes overnight, she was stable enough for Dr. Reisner to order a CT scan this morning. The scan looked very good (ie: no excessive bleeding and the swelling of her brain was under control). Marin remains heavily sedated and on a respirator for now. She started receiving nourishment through a feeding tube this afternoon. Going forward, the care team will slowly take her off medications one by one, and if her vital signs remain stable, she should be regaining consciousness in the next day or so. The power of love and all of your prayers are the foundation of our strength and we greatly appreciate everyone's support. A special thanks today to our friends Kelly B., Carla T., Brenda E., Carol Ann M., the Larry Smith family, and Uncle Ron for their uplifting visits. Please keep Marin in your prayers and hopefully she'll be out of the ICU soon. Thanks again!

Love,

The Morrison family


Monday, March 7, 2005 6:11 AM CST

I have definately decided that sleeping on a five foot long, two feet wide cot is not the definition of luxury! I can't believe that Matt has gotten any sleep in the last four days while he has been here. Last night he got to go home and get a good night sleep.

We had a rough night but everything seems to be stable now. Marin's blood pressure was a little low for their liking so they gave her some medicine to make it go up. Her reaction took her blood pressure way too high. After doctors running in and out for some time, they got it under control. Needless to say, they decided not to give her that drug any more. For no apparent reason, the same thing happened this morning with her blood pressure without any drugs being involved. They are quite puzzled as to why this is happening but hope it won't continue.

Lets all have a good day today and keep Marin in your thoughts and prayers. She truely remains an inspiration to me!

Much love, Nancy
Matt, Marin, Camlyn, and Michael too!


Sunday, March 6, 2005 3:29 PM CST

Dear Friends and Family,

Today has been a good day so far. Marin has remained stable and consistant all day. They are controling all of her functions. Yesterday she was trying to fight, as she always does, and it was too much preasure on her brain. The doctors will keep her like this for a few days and then slowly, one thing at a time, decrease all the machines and meds.

Pray for Marin as she rest and fights for recovery. I know God is sharing each of your prayers with her and she's smiling in her heart.

Again, thanks for everything.

A big Hug, Matt, Nancy, Marin, Cami, and Michael


Sunday, March 6, 2005 7:33 AM CST

Marin remains in the intensive care unit under sedation. She had some difficult moments last night, but her key vital signs had stabalized by this morning. The care team is most concerned about the pressure within her cranium, and as of this morning, Dr. Reisner felt he had this reasonably under control. Swelling and bleeding remains a concern and Marin has had a low-grade fever since coming out of surgery Saturday. She will be in the ICU for several more days, and she'll need to continue fighting hard for her recovery. Please continue to remember her in your prayers, and again, all of your contributions to her guest book have been very uplifting to all of us.

Thanks everybody and God bless you,
The Morrison family


Saturday, March 5, 2005 4:33 PM CST

SURGERY UPDATE:
Marin is out of the operating room and doing well after 2-plus hours of emergency surgery Saturday afternoon. Dr. Reisner reports that he was able to remove most of the blood clot that had developed, but that there will be several difficult days ahead. Marin will remain sedated and on a respirator in the Intensive Care unit for the next 24-48 hours. They will monitor her brain swelling closely and try to determine a how to stem blood seepage within the tumor cavity. Marin remains very strong and all her vital signs indicate she's doing well in her fight.
Again, all your prayers and support have uplifted her and have been an immeasurable source of comfort to our family. Please pray for Marin's safe recovery. She's a special person with many, many special friends and loved ones.

Love,
Matt, Nancy, Marin, Camlyn & Michael


Saturday, March 5, 2005 4:33 PM CST

SURGERY UPDATE:
Marin is out of the operating room and doing well after 2-plus hours of emergency surgery Saturday afternoon. Dr. Reisner reports that he was able to remove most of the blood clot that had developed, but that there will be several difficult days ahead. Marin will remain sedated and on a respirator in the Intensive Care unit for the next 24-48 hours. They will monitor her brain swelling closely and try to determine a how to stem blood seepage within the tumor cavity. Marin remains very strong and all her vital signs indicate she's doing well in her fight.
Again, all your prayers and support have uplifted her and have been an immeasurable source of comfort to our family. Please pray for Marin's safe recovery. She's a special person with many, many special friends and loved ones.

Love,
Matt, Nancy, Marin, Camlyn & Michael


Saturday, March 5, 2005 1:47 PM CST

We need your prayers now more than ever. Marin has suffered a set-back. She went back in to surgery Saturday afternoon at approximately 2:30 to remove a blood clot that developed during the day. Dr. Reisner is performing the emergency surgery. Matt & Nancy are at the hospital with her and we'll continue to keep you updated as best we can.

With love and faith in Jesus,
The Morrison family


Saturday, March 5, 2005 8:13 AM CST

Marin continues her recovery in intensive care. Her vital signs are strong although her blood pressure is a bit on the high side. Dad stayed with her in the ICU last night where she's been sleeping continuously, but is responsive when she's spoken to. She underwent a post-OP MRI this morning to determine how much of the tumor remains. We'll have the results of that later. Marin is rather swollen today, and the doctor says that may get worse before it gets better. He expects she'll be in ICU for another day or so, meaning she won't be able to take visitors probably through the weekend. We'll keep you posted. Thanks again for all the love and support!
~The Morrison family

From Marin:
(Pre-OP)

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Saturday, March 5, 2005 8:05 AM CST

Marin continues her recovery in intensive care. Her vital signs are strong although her blood pressure is a bit on the high side. She's rather swollen today, and the doctor says that may get worse before it gets better. He expects she'll be in ICU for another day or so, meaning she won't be able to take visitors probably through the weekend. We'll keep you posted. Thanks again for all the love and support!
~The Morrison family

From Marin:
(Pre-OP)

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Friday, March 4, 2005 7:49 PM CST

UPDATE: Marin's surgery is over and she's doing great!

Dr. Hudgins completed approximately 8 hours of what he termed extremely difficult surgery. He relieved an enormous amount of pressure on her brain by draining the fluid sac and removed as much as 70% of the tumor. The positioning of the mass among a system of blood vessels made it impossible to execute total removal. There was a lot of bleeding and Marin required one unit of blood during surgery. Dr. Hudgins called in his partner Dr. Reisner to assist. The best news is that Marin was strong throughout the operation and awoke with her motor functions and speech intact (these were the primary concerns based on the area of the brain where the tumor was located). Marin is in recovery now with Mom and Dad at her bedside. A biopsy on the tumor is being performed, but the results won't be available for several days. The prevailing thought is that it's a slow-growth tumor, and may very well be benign. Let's hope.

A special thanks to the team of caregivers at Children's Health Care of at Atlanta at both Scottish Rite Hospital and at Egleston Children's Hospital and to our good friends Melissa R., Kelly B., Debbie O., Darla U., Brenda E. and COUSIN EILEEN who shared their time with us today in the waiting room. We appreciate all the wonderful support from everyone... the power of prayer and the grace of God has smiled on us today. More soon.

Love, The Morrison family

From Marin:
(Pre-OP)

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Friday, March 4, 2005 3:18 PM CST

UPDATE: Marin's surgery is over and she's doing great!

Dr. Hudgins completed approximately 8 hours of what he termed extremely difficult surgery. He relieved an enormous amount of pressure on her brain by draining the fluid sac and removed as much as 70% of the tumor. The positioning of the mass among a system of blood vessels made it impossible to execute total removal. There was a lot of bleeding and Marin required one unit of blood during surgery. Dr. Hudgins called in his partner Dr. Reisner to assist. The best news is that Marin was strong throughout the operation and awoke with her motor functions and speech intact (these were the primary concerns based on the area of the brain where the tumor was located). Marin is in recovery now with Mom and Dad at her bedside. A biopsy on the tumor is being performed, but the results won't be available for several days. The prevailing thought is that it's a slow-growth tumor, and may very well be benign. Let's hope.

A special thanks to the team of caregivers at Scottish Rite and at Egleston and to our good friends Melissa R., Kelly B., Debbie O., Darla U. and Brenda E. who shared their time with us today in the waiting room. We appreciate all the wonderful support from everyone... the power of prayer and the grace of God has smiled on us today. More soon.

Love, The Morrison family

From Marin:
(Pre-OP)

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Friday, March 4, 2005 12:56 AM CST

Friends and family:

We just received another update. Marin is fine and is still in surgery. All of her vitals remain good. Another neurosurgeon as been brought in, Dr. Reisner, to assist Dr. Hudgins due to the extended time it is taking. They said it will be at least a couple of more hours. When I receive another update, I will let all of you know. Thanks again for you love and care for our precious daughter Marin.



From Marin:

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Friday, March 4, 2005 12:56 AM CST

Friends and family:

We just received another update. Marin is fine and is still in surgery. All of her vitals remain good. Another neurosurgeon as been brought in, Dr. Reisner, to assist Dr. Hudgins due to the extended time it is taking. They said it will be at least a couple of more hours. When I receive another update, I will let all of you know. Thanks again for you love and care for our precious daughter Marin.



From Marin:

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Friday, March 4, 2005 11:33 AM CST

Friends and Family:

We just received a call from the OR. They said Marin is doing fine. All of her vitals are good and they have sucessfully made the incision. Dr. Hudgins is now starting to remove the tumor. He is working from the inside out. The inside is not as dangerous because it's not touching any part of the brain. The nurse said she will call again in 1 1/2 hours. We'll update you then.




From Marin:

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Friday, March 4, 2005 11:33 AM CST

Friends and Family:

We just received a call from the OR. They said Marin is doing fine. All of her vitals are good and they have sucessfully made the incision. Dr. Hudgins is now starting to remove the tumor. He is working from the inside out. The inside is not as dangerous because it's not touching any part of the brain. The nurse said she will call again in 1 1/2 hours. We'll update you then.




From Marin:

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Friday, March 4, 2005 7:33 AM CST

Dear Family and Friends,
Marin is in surgery today with Dr. Roger Hudgins at Scottish Rite Children's Hospital in Atlanta. The operation to remove a large tumor from the left side of her brain is expected to last a minimum of four and a half hours. Afterword, Marin will be resting in the intensive care unit for at least 24 hours. We'll will keep you posted with the latest details after the proceedure.
On a more personal note, we want to thank all of you deeply for the wonderful support and comfort you've offered our family since this flared up last week. Our family, friends, and neighbors have been fantastic in responding to this crisis. All the love and prayers have been well received, and the amazing journal entries from old friends, new friends, and friends we've never met have been wonderful for all of us, and especially uplifting for Marin these past few days. We love you all ~ Nancy, Matt, Marin, Camlyn & Michael

From Marin:

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
Marin M.


Thursday, March 3, 2005 10:05 AM CST

Hi everybody!

Thank you soooo much for all the things you have done for me! All the gifts that I have gotten are wonderful and all the prayers. I have a feeling that everything will go great. This might sound strange, but I am actually excited and can't wait till all this is over with. I also can't wait to get back into the pool! I don't know how long I have to wait to get back into the pool after surgery, but hopefully it goes by fast. Thanks again!

Love,
marin m.

My surgery begins tomorrow, Friday March 4th, at 8:30a.m. at Scottish-Rite childrens hospital. Keep the prayers coming! I love you all!!






Tuesday, March 1, 2005 8:56 PM CST

Well, friends and family, the decision has been made. Marin will have surgery on Friday, March 4th starting at 8:30am. Dr. Robert Hudgins will perform the surgery out of Scottish-Rite hospital. He said it will take "hours and hours."

Please think of Marin this day and pray. I truely believe in the power of prayer.

The good news is that Dr. Hudgins allowed Marin to come home until the surgery. He even said she could go swimming on Wednesday and Thursday. Needless to day, she's elated. Thanks for all your support. Please feel free to put a note in her guestbook, call us on the phone, or stop by.

Your overwhelming support is appreciated more than words can say. They say that God only gives you what you can take. I believe Marin can take this. She's one of the toughest people I know and as I said before, I feel honored to be her mother.

Most fondly and a big hug to all, Nancy, Marin, and family


Tuesday, March 1, 2005 9:48 AM CST

I firstly want to tell all of you how much we appreciate your journal entries and visits!! Marin now has a full time job reading your messages, and is totally lovin it!!!

Today we have scheduled a second opinion with Dr. Hudgins who practices out of Scottish-Rite. We will post tonight what decision we have made.

Yesterday was a great day. It was as if we took a break from reality. Marin came home due to the second opinion today. She went to Swim Atlanta to visit Chris Davis, her coach, and her friends. We took her to the movies last night to see Hitch - very cute! Now we are packing her up again to go back to the grind stone.

Keep praying and working hard. Marin is such a hard worker that if everyone tries to work as hard as her, that could also be her gift!

Our love goes out to all. Nancy, Marin, and family.


Monday, February 28, 2005 9:30 AM EST

Hi friends and family,

We have decided to seek a second opinion for whom will perform surgery on Marin. This has brought us to check Marin out of Emory and take her home today. Our appointment with Dr. Robert Hudgins is tomorrow at 2:30p.m. He performs surgery our of Scottish-Rite. If we choose to have him perform the surgery, Marin will then be checked into Scottish-Rite tomorrow evening.

Thanks again and pray for our little darling.

Most fondly and a big hug to all!! Nancy, Marin, and family


Sunday, February 27, 2005 8:27 PM CST

Dear friends and family,

Marin had a fabulous day today! Matt still remains at the hospital with her. When I left, she told me her face hurt from smiling too much! The visits have truely been a blessing and we thank each and everyone of you for your cards, flowers, ballons, signs, support, etc!!

Deciding on a surgeon is our next pressing choice. Please keep those prayers coming. Surgery is not scheduled because of our desire to seek second opinions. When the choice is made, we'll keep everyone informed.

Thanks again for your love.

Nancy






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