|
Rest in Peace My Sweet Boy "Dustin Cobb" Welcome to Dustins Web Page. It has been provided to keep family & friends updated on treatments for Dustin. Dustin was Diagnosed with Neuroblastoma stage 4 Jan. 31, 2001, he was declared NED and off treatment May 2002, he relapsed in his bone marrow & bone Oct 2003.5 rounds of topetican, 1 round of 3f8 antibodies developed HAMA 6 more rounds of topetican clean scans and clean Bone Marrow!!!! Continuing treatment of Topetican every 3 weeks. As of March 22,2005 Dustin is still on Chemo, still has a positive HAMA, and still clean scans!!!! As of June 13th 2005 no more Chemo, July 2005 HAMA NEGATIVE,and as of Augest 8th 2005 clean scans and bone marrow. Dustin began having pains in his right ankle early October 2005, November 10th 2005 confirmed relapse, Topotecan started again we are now in process of exploring treatment options for Dustin. Topotecan failed, scans were worse December 2005, attempted to do ABT-751 but his platelets would not hold up, Dustin was in severe pain, we started Tomazolamide, Iranotecan and Vincristin 2 weeks on one week off, the pain started going away at the end of the 1st week of the 1st round, scans were better after the 2nd round, but we had to drop the vincristine it was causing problems with urinating. Currently he is doing tomazolamide and iranotecan. We are still looking for other treatments.As of May 2, 2006 Dustin has started taking ABT-751 administered by the NIH in Bethesda, Maryland.June 13 2006 Dustin has a new light up on his skull, and slight progression in his left femur. We have started the Iranotecan, Tomozolimide, and a reduced dose of Vincristine, 2 weeks on and 1 week off.August 10 2006 dustin is showing Progression again, he did 1 round of Zometa and low dose Cytoxan, again he has shown progression September 27th started 1st round of High Dose Carboplatin and Etopiside, Currently seeking effective treatments. After 4 rounds of High dose Carboplatin and Etoposide & 1 round of 3F8 antibodies (he formed a HAMA again), Dustin was switched to low dose oral etoposide after 4 rounds and rapidly progressing disease Dustin Started Nifurtimox, Cytoxan, Topotecan, & Zometa, and has has several side effects but is now stable and very blessed to be able to continue treatment with Dr Sholler in Vermont.
After a 7 1/2 year fight we lost Dustin on July 17, 2008.
BR>>
~~ "Hope"~~ If you can look at the sunset and smile, then you still have hope.
If you can find beauty in the colors of a small flower, then you still have hope.
If you can find pleasure in the movement of a butterfly, then you still have hope.
If the smile of a child can still warm your heart, then you still have hope.
If you can see the good in other people, then you still have hope.
If the rain breaking on a roof top can still lull you to sleep, then you still have hope.
If the sight of a rainbow still makes you stop and stare in wonder, then you still have hope.
If the soft fur of a favored pet still feels pleasant under your fingertips, then you still have hope.
If you meet new people with a trace of excitement and optimism, then you still have hope.
If you give people the benefit of a doubt, then you still have hope.
If you still offer your hand in friendship to others that have touched your life, then you still have hope.
If receiving an unexpected card or letter still brings a pleasant surprise, then you still have hope.
If the suffering of others still fills you with pain and frustration, then you still have hope.
If you refuse to let a friendship die, or accept that it must end, then you still have hope.
If you look forward to a time or place of quiet and reflection, then you still have hope.
If you still buy the ornaments, put up the Christmas tree or cook the turkey, then you still have hope.
If you still watch love stories or want the endings to be happy, then you still have hope.
If you can look to the past and smile, then you still have hope.
If, when faced with the bad, when told everything is futile, you can still look up and end the conversation with the phrase...."yeah....BUT.." then you still have hope.
Hope is such a marvelous thing. It bends, it twists, it sometimes hides, but rarely does it break. It sustains us when nothing else can. It gives us reason to continue and courage to move ahead, when we tell ourselves we'd rather give in.
Hope puts a smile on our face when the heart cannot manage.
Hope puts our feet on the path when our eyes cannot see it.
Hope moves us to act when our souls are confused of the direction.
Hope is a wonderful thing, something to be cherished and nurtured, and something that will refresh us in return. And it can be found in each of us, and it can bring light into the darkest of places. Never lose hope. --Author Unknown
The Littlest Soldiers
The medals on our chest are portacaths for meds. Helmets wont stay on cause no hair is on our heads.
Our weapons of destruction we take every day. We fight the battle within in us, as we struggle on to play.
We fight with honor and COURAGE, No Marine could do as well. We are only little children living in this hell !!
So bring on the medals The Purple Hearts of War. The Gold Cross, The Silver Star, To place upon our scars.
For we are the children of Cancer No one has fought this hard. But everyday we struggle on.
Our life is our REWARD!!!
Journal
Tuesday, January 17, 2012 6:29 PM CST It has been 3 1/2 years since I have held my sweet boy, heard his contagious laugh, heard his sweet voice and I have to say that there has not been a day that has gone by that I haven't missed him. I see his friends are growing and getting older and I wonder so many times what my baby would look like now, how big would he be. It has been and still is very hard to cope with this horrific loss. Big brother Bryan will graduate this year and Dustin would be starting High school. We are approaching the anniversary date of Dustin’s diagnoses (1/31/01), I really don’t want to remember that day but remember it I do every year…….. We are Missing our Sweet Boy and always will.
Read Journal History
Hospital Information: Childrens Hospital of Atlanta - Egelston 1405 Clifton Road N.E. Atlanta, Ga. 30322 (404) 315-3151
Links: http://www.beebo.info/warriors.htm Other Neuroblastoma Warriors https://www.meb.uni-bonn.de/cancer.gov/CDR0000062786.html What is Neuroblastoma http://www.curefornb.com/ Cure for Neuroblastoma (NEW)
|
|