Dustin Cobb

Welcome to Dustins Web Page. It has been provided to keep family & friends updated on treatments for Dustin. Dustin was Diagnosed with Neuroblastoma stage 4 Jan. 31, 2001, he was declared NED and off treatment May 2002, he relapsed in his bone marrow & bone Oct 2003.5 rounds of topetican, 1 round of 3f8 antibodies developed HAMA 6 more rounds of topetican clean scans and clean Bone Marrow!!!! Continuing treatment of Topetican every 3 weeks. As of March 22,2005 Dustin is still on Chemo, still has a positive HAMA, and still clean scans!!!! As of June 13th 2005 no more Chemo, July 2005 HAMA NEGATIVE,and as of Augest 8th 2005 clean scans and bone marrow. Dustin began having pains in his right ankle early October 2005, November 10th 2005 confirmed relapse, Topotecan started again we are now in process of exploring treatment options for Dustin. Topotecan failed, scans were worse December 2005, attempted to do ABT-751 but his platelets would not hold up, Dustin was in severe pain, we started Tomazolamide, Iranotecan and Vincristin 2 weeks on one week off, the pain started going away at the end of the 1st week of the 1st round, scans were better after the 2nd round, but we had to drop the vincristine it was causing problems with urinating. Currently he is doing tomazolamide and iranotecan. We are still looking for other treatments.As of May 2, 2006 Dustin has started taking ABT-751 administered by the NIH in Bethesda, Maryland.June 13 2006 Dustin has a new light up on his skull, and slight progression in his left femur. We have started the Iranotecan, Tomozolimide, and a reduced dose of Vincristine, 2 weeks on and 1 week off.August 10 2006 dustin is showing Progression again, he did 1 round of Zometa and low dose Cytoxan, again he has shown progression September 27th started 1st round of High Dose Carboplatin and Etopiside, Currently seeking effective treatments. After 4 rounds of High dose Carboplatin and Etoposide & 1 round of 3F8 antibodies (he formed a HAMA again), Dustin was switched to low dose oral etoposide after 4 rounds and rapidly progressing disease Dustin Started Nifurtimox, Cytoxan, Topotecan, & Zometa, and has has several side effects but is now stable and very blessed to be able to continue treatment with Dr Sholler in Vermont.

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If anyone is interested in making donations to Dustin to help with his travel his account is:


************* WACHOVIA BANK *********
********** Savings Account
for Dustin Cobb ******
********ACCOUNT # 3000103057070******

Any and all contributions for Dustins Travel will be greatly appriciated.


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~~ "Hope"~~
If you can look at the sunset and smile,
then you still have hope.

If you can find beauty in the colors of a small
flower, then you still have hope.

If you can find pleasure in the movement of
a butterfly, then you still have hope.

If the smile of a child can still warm your heart,
then you still have hope.

If you can see the good in other people,
then you still have hope.

If the rain breaking on a roof top can still lull
you to sleep, then you still have hope.

If the sight of a rainbow still makes you stop
and stare in wonder, then you still have hope.

If the soft fur of a favored pet still feels pleasant
under your fingertips, then you still have hope.

If you meet new people with a trace of excitement
and optimism, then you still have hope.

If you give people the benefit of a doubt,
then you still have hope.

If you still offer your hand in friendship to others
that have touched your life, then you still have hope.

If receiving an unexpected card or letter still brings
a pleasant surprise, then you still have hope.

If the suffering of others still fills you with pain and frustration, then you still have hope.

If you refuse to let a friendship die, or accept that
it must end, then you still have hope.

If you look forward to a time or place of quiet and
reflection, then you still have hope.

If you still buy the ornaments, put up the Christmas
tree or cook the turkey, then you still have hope.

If you still watch love stories or want the endings
to be happy, then you still have hope.

If you can look to the past and smile,
then you still have hope.

If, when faced with the bad, when told everything
is futile, you can still look up and end the conversation
with the phrase...."yeah....BUT.." then you still have hope.

Hope is such a marvelous thing. It bends, it twists, it sometimes hides, but rarely does it break. It sustains us when nothing else can. It gives us reason to continue and courage to move ahead, when we tell ourselves we'd rather give in.

Hope puts a smile on our face when the heart cannot
manage.

Hope puts our feet on the path when our eyes cannot
see it.

Hope moves us to act when our souls are confused
of the direction.

Hope is a wonderful thing, something to be cherished
and nurtured, and something that will refresh us in return.
And it can be found in each of us, and it can bring light
into the darkest of places. Never lose hope.
--Author Unknown









The Littlest Soldiers

The medals on our chest are portacaths for meds.
Helmets wont stay on cause no hair is on our heads.

Our weapons of destruction we take every day.
We fight the battle within in us, as we struggle on to play.

We fight with honor and COURAGE,
No Marine could do as well.
We are only little children living in this hell !!

So bring on the medals
The Purple Hearts of War.
The Gold Cross,
The Silver Star,
To place upon our scars.

For we are the children of Cancer
No one has fought this hard.
But everyday we struggle on.

Our life is our REWARD!!!

Journal

Tuesday, October 7, 2008 10:53 AM CDT

This is what we have been doing to continue to fight back, please take a minute to check Dustins new website. Our 1st annual Memory ride November 8th. If you can't ride but still want to participate you can become a Ghost rider.
Also some of the bracelets are posted.


http://dustinsarmyofhope.com/

Hospital Information:

Childrens Hospital of Atlanta - Egelston
1405 Clifton Road N.E.
Atlanta, Ga. 30322
(404) 315-3151

Links:

E-mail Author: bcobb2989@comcast.net

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