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Thanks for visiting our guestbook!(This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.)IF YOU DON'T SEE YOUR ENTRY AFTER ADDING -- PLEASE CLICK ON RELOAD/REFRESH Click here to sign the guestbook. Click here to go back to the main page. Marsha ! So beautiful, your painting and sketching! AND, I am so glad you are there with Judy Middleton. She is a great spirit. love to you both from Phyllis Phyllis Dolph Anacortes, WA USA - Thursday, January 9, 2014 3:23 PM CST Bon courage aux parents de ce jeune garçon parti trop tot. Isabel <isabelsourati85@yahoo.fr> Paris, FRANCe - Wednesday, August 29, 2012 10:20 AM CDT Just thinking of you. So sad to hear about your husband. Jason's mom www.caringbridge.org/tn/jasona/ Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TN USA - Friday, January 21, 2011 1:43 AM CST Blessings To All On New Year's Eve! Colette Clifton Park, NY U.S.A. - Thursday, December 31, 2009 4:47 PM CST Hoping you will please contact me regarding Courtney's link under Rhabdo Angels. Thank you. Brett bcmcnaught@sasktel.net Brett McNaught <bcmcnaught@sasktel.net> Regina, Sk Canada - Sunday, August 23, 2009 5:23 PM CDT Im very sorry for the lose of suryan jama and ayan jama who passed away. Me and the family recieved the news recently and we regret we lost contact with the family. i am an aunty to suryan and ayan as me and saeed were fist cousins. from me and my five daughters and my husband we give are condolenses to the people who truly knew suryan and ayan. Waris yusuf jama i would really appreciate if i could get into contact with the laurie. thank you Waris Yusuf Jama <lady_mali786@hotmail.com> London, england - Sunday, August 23, 2009 9:41 AM CDT DEAR LAURIE, IM SORRY TO HEAR THIS BAD NEWS SO LATE.AND WHEN SAID PASSED AWAY WE LOST CONTACT WITH YOU.MAY ALLAH TAKE HIM TO PARDISE BOTH SURYAN & AYAN.AND YOU MAY ALLAH MAKE YOU STRONG. NASRA <nasra_j@hotmail.co.uk> LONDON, ENGLAND - Tuesday, August 18, 2009 11:14 AM CDT dear laurie, my name is sirad the sister of saed hassan jama and my daughter posted a blog on this website. iam deeply sad of the death of suryan and finding out that he has been died for nill five years just breaks me into pieces but the laurie me and my family are in need of information of ayan. so please i you can contact me from my daughters email address that will be great. with all my love sirad. sirad <khadijaabdullahi1@hotmail.com> melbourne , Vic Australia - Friday, August 14, 2009 11:17 PM CDT i am so sory that my cousin had passed away without seeing him, i heard this painfull news from my other relitive who also get the news throught the interenet (donation side) may allah pless his soul and rest him in peace. and may allah make you strong and at ease, we are making dua averyday at the prayer time to you and to him. saida jama copenhagen, denmark - Friday, August 14, 2009 11:38 AM CDT i am so sory that my cousin had passed away without seeing him, i heard this painfull news from my other relitive who also get the news throught the interenet (donation side) may allah pless his soul and rest him in peace. and may allah make you strong and at ease, we are making dua averyday at the prayer time to you and to him. saida jama copenhagen, denmark - Friday, August 14, 2009 11:36 AM CDT dear laurie, i discovered this website a couple of days ago and iam really sorry for the death of suryan. it is really hard to get over your own flesh and blood and iam sincerly sorry. i am 15 about to sixteen in weeks. i found this website in search of my cousins Suryan and Ayan although i have never seen them their my blood and the closet thing to a answer i can find is probably this website. if you can please give me an answer about suryan and if he had a sister named ayan then iam on the right spot please and please just contact me even if iam not right just to make sure because iam in desperate need of information of my cousins. sorry for your lose again khadija Abdullahi <khadijaabdullahi1@hotmail.com> Melbourne, VIC Australia - Friday, August 14, 2009 1:00 AM CDT Dear Laurie, This is a special date in our family life. I know you have many special anniversaries as well, and I pray that you remember some of those good times with a happy heart today. God bless you always. Grace, peace, love, and all good, ~Colette Colette Clifton Park, NY U.S.A. - Friday, June 19, 2009 5:38 PM CDT Happy Memorial Day To All! Dear Laurie, I am thinking of you on a clear, pleasant Memorial Day evening. Although I know the purpose of this day is to honor those "lost" serving our country, I know that many use this time to honor all of our departed loved ones and friends. I hope you have had adequate time to remember, reflect, and pray during this long weekend. I wish I had words to provide peace and/or assistance to you, one who has grieved for over four years. I think of your son often, and I do pray for you. I hope that information helps, at least a little. God bless you and Stephen. Grace, peace, love, and all good, ~Colette Prayer For Our Country Almighty God, who hast given us this good land for our heritage: We humbly beseech thee that we may always prove ourselves a people mindful of thy favor and glad to do thy will. Bless our land with honorable industry, sound learning, and pure manners. Save us from violence, discord, and confusion; from pride and arrogance, and from every evil way. Defend our liberties, and fashion into one united people the multitudes brought hither out of many kindreds and tongues. Endue with the spirit of wisdom those to whom in thy Name we entrust the authority of government, that there may be justice and peace at home, and that, through obedience to thy law, we may show forth thy praise among the nations of the earth In the time of prosperity, fill our hearts with thankfulness, and in the day of trouble, suffer not our trust in thee to fail; all which we ask through Jesus Christ our Lord. Amen. ~The Book Of Common Prayer, Page 820 Colette Clifton Park, NY U.S.A. - Monday, May 25, 2009 8:56 PM CDT Easter Joy And Blessings To All! Dear Stephen and Laurie, Suryan has been remembered in Easter Eucharist. I hope you are having a good day. You are in my thoughts and prayers. God bless you always, and God bless all of Suryan's friends and loved ones. Grace, peace, love, and all good, ~Colette Today's Collect: Almighty God, who through your only-begotten Son Jesus Christ overcame death and opened to us the gate of everlasting life: Grant that we, who celebrate with joy the day of the Lord's resurrection, may be raised from the death of sin by your life-giving Spirit; through Jesus Christ our Lord, who lives and reigns with you and the Holy Spirit, one God, now and for ever. Amen. +++ Jesus Christ is risen today, Alleluia! our triumphant holy day, Alleluia! who did once upon the cross, Alleluia! suffer to redeem our loss. Alleluia! Hymns of praise then let us sing, Alleluia! unto Christ, our heavenly King, Alleluia! who endured the cross and grave, Alleluia! sinners to redeem and save. Alleluia! But the pains which he endured, Alleluia! our salvation have procured, Alleluia! now above the sky he's King, Alleluia! where the angels ever sing. Alleluia! Sing we to our God above, Alleluia! praise eternal as his love, Alleluia! praise him, all ye heavenly host, Alleluia! Father, Son, and Holy Ghost. Alleluia! Words: Compleat Psalmodist, 1749 Stanza 4, Charles Wesley (1707-1788) Music: Easter Hymn, from Lyra Davidica, 11708; adapt. The Compleat Psalmodist, 1749 Hear it at: http://www.oremus.org/hymnal/j/j038.html +++ Gratefully. Faithfully. Peacefully. Colette Clifton Park, NY U.S.A. - Sunday, April 12, 2009 1:02 PM CDT Dear Laurie, I have just read your comment written on Suryan's 26th birthday. It stabs at the heart. I do not know your pain, but I have had pain due to losing a young adult son in differing circumstance, and I sympathize. I have thought of Suryan often during this, Holy Week. You and Stephen have been in my thoughts and prayers. God bless you both. Grace and peace, ~Colette I have left this hymn in other CaringBridge guest books today. Certainly the music many of us used yesterday, on Good Friday, spoke of a mother's grief. I would recommend some of that to you. O Sorrow Deep! (a hymn for a day of holy resting): O sorrow deep! Who would not weep with heartfelt pain and sighing! God the Father's only Son in the tomb is lying. The Paschal Lamb, like Isaac's ram, in blood was offered for us, pouring out the life that he might to life restore us. Blest shall they be eternally who ponder in their weeping that the glorious Prince of Life should in death be sleeping. O Jesus blest, my help and rest, who tears I pray thee, hear me: now, and even unto death, dearest Lord, be near me. Words: St. 1, Friedrich von Spee (1591-1635); tr. Charles Winfred Douglas (1867-1944). Sts. 2-3, James Waring McCrady (b. 1938). St. 4, Johann Rist (1607-1667); tr. Charles Winfred Douglas (1867-1944) Music: O Traurigkeit The Hymnal 1982, #173 Hear it at: http://www.oremus.org/hymnal/o/o594.html Colette Colette, NY U.S.A. - Saturday, April 11, 2009 12:28 AM CDT Happy Birthday Suryan! I miss you! Brittney Jarvis Tallahassee, GL USA - Monday, March 30, 2009 10:47 AM CDT Hope your Spring is going well and your memories are keeping you going! You commented once about it seemed like four years was "enough to grieve" but I don't think anyone can ever set a timeline on what's very real for you each day...hang in there and praying for you as you continue your journey of love...God is good and His comfort gets us through days it just seems too hard...Happiest of Springs and joyous Easter season... Amy STeinhofer <amydevault@sbcglobal.net> Indianapolis, IN - Thursday, March 26, 2009 10:34 PM CDT Happy New Year, hope this finds you hangin' in there as the busy and stressful Christmas season is winding down. You've been in our prayers lately as you continue to live life in memory of your wonderful kids! Amy Steinhofer <amydevault@sbcglobal.net> Indianapolis, IN USA - Monday, January 5, 2009 7:43 PM CST Dear Laurie and Stephen, I am thinking of you on New Year's Eve. God bless you always. Grace, peace, love, and all good, ~Colette Colette Clifton Park, NY U.S.A. - Wednesday, December 31, 2008 8:25 PM CST Merry Christmas, Laurie and Stephen! I have been thinking of you, as you have another Christmas without your precious son, Suryan. I cannot image how hard this must be for you and for other CaringBridge parents. My prayers are with you today. Grace and peace, ~Colette Colette Clifton Park, NY U.S.A. - Thursday, December 25, 2008 3:05 PM CST I'm sure Ayan and Suryan are together and are reminsicing about good times--the many memories of Mom live on forever in your kids! Praying for you this time of year, reminders of those who have gone to a better place are nice but hard to handle sometimes. God Bless and enjoy the holiday season....Many blessings..Amy Amy Steinhofer <amydevault@sbcglobal.net> Indianapolis, IN - Thursday, December 11, 2008 5:53 PM CST Hope you've had a good weekend and are able to make some new memories. I'm sure you have so many fond memories of holidays with your kids--kids just have a way of lighting up each day and making it a bit more enjoyable, especially for Moms and Dads. Know you're in many prayers as you go through this blessed time of year once again. God Bless and hang in there! Amy Steinhofer <amydevault@sbcglobal.net> Indianapolsi, IN - Sunday, December 7, 2008 7:07 PM CST I must admit the pain of losing a child has got to be just beyond comprehension...and makes me tresure my two little ones even more! Saying prayers for you to find comfort and peace in Christ alone....I think with all the difficult things we meet in this life on this earth the only thing we can find true peace in his Him...I'm sure Suryan is having big Christmas parties as we speak with the guest of honor right there with him. Praying for you this holiday for peace and happiness in memories, old and new! God Bless... Amy Steinhofer <amydevault@sbcglobal.net> Indianapolsi, IN - Wednesday, December 3, 2008 9:13 PM CST Dear Laurie and Stephen, I just want you to know that I have been thinking of you both and of your handsome son, Suryan, today. I am sure the day was difficult, and the coming Christmas and New Year's season will be hard as well. As I prepare for bed, you are in my prayers tonight. God bless you always. Grace and peace, Colette Colette Clifton Park, NY U.S.A. - Friday, November 28, 2008 0:51 AM CST Hi Neal Jeanette <alohajyorba@yahoo.com> Ceres, Ca USA - Thursday, November 27, 2008 1:24 AM CST Just wanted to remind you and Stephen both that I love you guys... Jenni <jenni_edmiston@hotmail.com> Jacksonville, FL - Tuesday, November 25, 2008 7:56 PM CST Dear Laurie and Stephen, I have been thinking of you and remembering your handsome son. I was talking to someone yesterday, whose son, a young adult, has always wanted to go to Hawaii, so that was one of the times I thought of you. There have been rallies for life and other fundraising events in the news, so they have also reminded me of Suryan and other young men, who died well to early because of the terrible disease we call cancer. I wish I could offer you more than a few words. God bless you both. Grace and peace, Colette Collect For The Feast Of Ninian Of Galloway, Bishop, Missionary To Scotland, 16 September 430: O God, who by the preaching of your blessed servant and bishop Ninian caused the light of the Gospel to shine in the land of Britain: Grant, we pray, that, having his life and labors in remembrance, we may show our thankfulness by following the example of his zeal and patience; through Jesus Christ our Lord, who lives and reigns with you and the Holy Spirit, one God, for ever and ever. Amen. Colette Clifton Park, NY U.S.A. - Tuesday, September 16, 2008 12:37 AM CDT friends people michael jones <michael@yahoo.com> ocoee, fl usa - Friday, August 15, 2008 11:00 PM CDT Dear Laurie and Stephen, I am thinking of you and your beautiful son. God bless you always. Grace and peace, ~Colette Today's Collect: Most loving Father, whose Son Jesus Christ came to give his life as a ransom for many: Give us the grace, as you did to your servant Maximilian Kolbe, to be always ready to come to the aid of those in need or distress, not counting the cost; that so we may follow in the footsteps of your Son Jesus Christ our Lord; who lives and reigns with you and the Holy Spirit, one God, now and for ever. Amen. Colette Clifton Park, NY U.S.A. - Thursday, August 14, 2008 8:15 AM CDT Some information about small cell lung cancer definition http://dotheblog.com/engine.php/submission;page=input,action=display,id=1749 [URL=http://dotheblog.com/engine.php/submission;page=input,action=display,id=1749]small cell lung cancer definition[/URL] Sally Newman <Sally Newman> NpcCDoXKqpgaP, hImaRsRxlXtpxj qtNMUnDUodWLrz - Tuesday, July 22, 2008 5:07 PM CDT Useful info about diagnosis of mesothelioma http://mesothelioma.sosblog.com/ [URL=http://mesothelioma.sosblog.com/]diagnosis of mesothelioma[/URL] Cancer Help <Cancer Help> eWSOspStu, VkndNliiSizYHSsbK FSJEgPGBsDQpHmsC - Sunday, July 20, 2008 11:53 AM CDT Happy Flag Day, Laurie and Stephen! I hope you two are doing well. I am thinking of you and of Suryan this morning. God bless you always. Grace and peace, ~Colette Colette Clifton Park, NY U.S.A. - Saturday, June 14, 2008 8:01 AM CDT Happy Memorial Day To All! Dear Laurie and Stephen, I am remembering Suryan and thinking of you both. Grace, peace, love, and all good, ~Colette O Judge of the nations, we remember before you with grateful hearts the men and women of our country who in the day of decision ventured much for the liberties we now enjoy. Grant that we may not rest until all the people of this land share the benefits of true freedom and gladly accept its disciplines. This we ask in the Name of Jesus Christ our Lord. Amen. ~The Book Of Common Prayer, Page 840 Colette Clifton Park, NY U.S.A. - Monday, May 26, 2008 2:00 PM CDT Blessings On Trinity Sunday To All! Dear Laurie and Stephen, The birds are singing, here, in the Capital District of New York. I am sure they are different from the ones you have in Hawaii, but they are pleasant and encouraging, just the same. May you receive blessings and encouragment today, as you read this note. God bless you always, and of course, God bless Suryan. Grace and peace, ~Colette Today's Collect: Almighty and everlasting God, you have given to us your servants grace, by the confession of a true faith, to acknowledge the glory of the eternal Trinity, and in the power of your divine Majesty to worship the Unity: Keep us steadfast in this faith and worship, and bring us at last to see you in your one and eternal glory, O Father; who with the Son and the Holy Spirit live and reign, one God, for ever and ever. Amen. Colette Clifton Park, NY U.S.A. - Sunday, May 18, 2008 4:51 PM CDT Dear Laurie and Stephen, I cannot believe I have not written here, at Suryan's site for over a month. I did not know when his birthday was. I certainly wish Suryan could have been with you, and been healthy, as you marked his 25th birthday. It has been raining here steadily for about thirty hours, and the power was off for a while tonight. The good thing is that in the last ten days, southern Saratoga County has started to blossom with spring. I am sure it does not compare to the lushness of Hawaii, but it is beautiful, just the same. God bless you both. Grace and peace, ~Colette P.S. I have visited a few times, but not stayed long. Colette Clifton Park, NY U.S.A. - Tuesday, April 29, 2008 0:48 AM CDT Hi, Laurie, Just checked in and saw your entry from this weekend. Thinking of you. RobinLeach <rleach@admin.fsu.edu> Tallahassee, Fl USA - Tuesday, April 1, 2008 8:35 AM CDT I am thinking of you as you go through Suryan's 25th birthday.. wishing he could be physically present with you as well. Karin's Caringbridge Site Canada - Sunday, March 30, 2008 3:49 AM CDT Dear Laurie and Stephen, I am thinking of you this morning, knowing that your connection with this day is strong, because of the suffering you have known with Suryan's illness. May God bless you always. Grace, peace, love, and all good, ~Colette The Collect For Good Friday: Almighty God, we pray you graciously to behold this your family (the assembled church), for whom our Lord Jesus Christ was willing to be betrayed, and given into the hands of sinners, and to suffer death upon the cross; who now lives and reigns with you and the Holy Spirit, one God, for ever and ever. Amen. Colette Clifton Park, NY U.S.A. - Friday, March 21, 2008 9:32 AM CDT I drop by here a few times a month; mostly because I am drawn to your son's beautiful pictures - I have read the entire journal and love your updates. Hope all is well, take care, Sheila S FL - Monday, March 10, 2008 10:28 AM CDT Dear Laurie, I just read your note in Karin's guest book. It is good that you are able to sign books and offer hope and encouragement to others. God bless you always. Grace and peace, Colette The Collect For February 27: Our God and King, who called your servant George Herbert from the pursuit of worldly honors to be a pastor of souls, a poet, and a priest in your temple: Give us grace, we pray, joyfully to perform the tasks you give us to do, knowing that nothing is menial or common that is done for your sake; through Jesus Christ our Lord, who lives and reigns with you and the Holy Spirit, one God, for ever and ever. Amen. It is officially February 28, here in New York, but where both you and Karin are, it is still the 27th. Colette Clifton Park, NY U.S.A. - Thursday, February 28, 2008 0:33 AM CST Happy Valentine's Day, Laurie and Stephen! I am thinking of you both and of your sweet son. May God bless and comfort you. Grace and peace, ~Colette Today's Collect: Almighty and everlasting God, who kindled the flame of your love in the heart of your holy martyr Valentine: Grant to us, your humble servants, a like faith and power of love, that we who rejoice in his triumph may profit by his example; through Jesus Christ our Lord, who lives and reigns with you and the Holy Spirit, one God, for ever and ever. Amen. Colette Clifton Park, NY U.S.A. - Thursday, February 14, 2008 12:22 AM CST Dear Laurie and Stephen, This is just a short note to let you know I am thinking of you both. I hope Laurie has regained good strength in her leg and that your dog has also recovered from the broken rib. May 2008 be a good year for you both. Grace and peace, Colette New Year's Prayer Oh Thou, who art ever the same, Grant us so to pass through the new year with faithful hearts, that we may be able in all things to please Thy loving eyes. Amen. ~Mozarabic, 700 A.D. Colette Clifton Park, NY U.S.A. - Wednesday, January 2, 2008 12:01 AM CST Merry Christmas Laurie, thanks for your message! I do remember the fight Suryan gave, he fought so hard, and lived so much in the short time he was given. I know the holidays must be especially difficult. I am thinking of Suryan and the other angels. It is hard to constantly be reminded of cancer, it is just so prevalent everywhere, I know what you mean. Hope your poor lil whippet heals real soon! Karin's Caringbridge Site Vancouver, BC, Canada - Tuesday, December 25, 2007 11:31 PM CST Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow. ~Melody Beattie Dear Laurie and Stephen, I just want to say, "Happy Thanksgiving!" to the two of you. May you enjoy everything about this holiday weekend, with grateful hearts, despite sadness and recent difficult news. God bless you always. Grace, peace, love, and all good, ~Colette Colette Clifton Park, NY U.S.A, - Thursday, November 22, 2007 3:59 AM CST Dear Laurie and Stephen, Today is the tenth anniversary of the passing of Mother Teresa. Recent information in the news, taken from her letters, indicates that she struggled for years, as many do, with spiritual dryness. Please let the knowledge that the great ones of faith struggle with problems, doubts, and dryness, help you, as you struggle with missing Suryan. I have just paused, here, at my keyboard, to pray for both of you, and to remember sweet Suryan. He certainly was beautiful! Laurie, I hope your leg is getting stronger. God bless you always. Grace, peace, love, and all good, Colette I don't know what God is doing. He knows. We do not understand, but of one thing I'm sure, He doesn't make a mistake. ~Mother Teresa (August 27, 1910 - September 5, 1997) Colette Clifton Park, NY U.S.A. - Wednesday, September 5, 2007 10:43 AM CDT Hi! I really am going to sit down and write you an email soon, I've just been so crazy with work and moving that I haven't really sat down to relax and think... so I wanted to send you a quick hello on here and let you know I've been thinking about you guys... Hope everything's going good Jenni Jacksonville, Fl - Sunday, August 26, 2007 4:17 PM CDT Dear Laurie, I just want you to know that I am thinking of you, Stephen, and your son, Suryan, tonight. I remember him, in our church, beneath a special Jesus and the Children window, with Connor, Jason, Ian, Jeff, and others. I hope you are gaining strength in your leg. God bless you always. Grace and peace, Colette Colette Clifton Park, NY U.S.A. - Sunday, August 26, 2007 1:15 AM CDT Hello Laurlie! I am in the process of planning a 5K race to raise money for sarcoma research. The race will be run in my friend Rob Faulkner's name, he passed in March of 2005 and is now our Rhabdo Angel. His mom being as helpful as she is sent me a bunch of websites and links I should check out this being one of them. My thoughts and prayers are with you in hope that you recover quickly and your leg is pain free! I enjoy your updates on your progress and look forward to the one you write telling us about a tremendous recovery! God Bless You<3 Julie Julie <Volley922@hotmail.com> - Saturday, August 25, 2007 3:46 PM CDT Hi Laurie, Just wanted to let you know that I stopped by. I think of you and of Suryan often. I'm so sorry to hear that you are having trouble with your leg and hope that it is completely better (no pain with recovered strength) very soon. Pam forever Jason's mom www.caringbridge.org/tn/jasona/ Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TN usa - Sunday, August 5, 2007 3:14 AM CDT Dear Laurie, I am thinking of you. I hope you regain good strength in your leg. Grace and peace, Colette Colette Clifton Park, NY U.S.A. - Saturday, August 4, 2007 11:28 PM CDT Laurie, I don't know you personally (but I wish I did). I was just reading the newest messages on the Website for Scout (Josephine Fuller). Thank you for signing Scout's guestbook and for the work you do to raise money for research. It is so so important. Scout's mother, Abby, is my dearest friend in the world. I just returned from Massachusetts where the family held the first memorial for Scout who died on 7/7/07. The bravery of these parents--and all of the others out there caring for very ill children--is beyond inspiring to me. In these days of deep grief for Abby, Neil, Leo (Scout's 5 y/o sister), and other family, I am so grateful that the world contains hearts such as yours. with great thanks, Connie Connie Klein <connie.klein@uchsc.edu> Denver, CO - Sunday, July 15, 2007 12:24 AM CDT Happy Fourth of July, Laurie and Stephen! I am thinking of you both, and as you request, I am praying for Elizabeth Doxie and her family. God bless you always. Grace and peace, Colette Colette Clifton Park, NY - Wednesday, July 4, 2007 4:53 PM CDT We just dropped by to check on you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Monday, June 18, 2007 1:33 PM CDT Hi Laurie, I am wishing you a speedy recovery! I also believe Suryan is looking down on you and sending you strength to get thru this. I hope Suryan meet Rob in heaven and is teaching him to ride the waves. Colleen Rob's Forever Mom www.faulk45.com Colleen Faulkner <Fleebis@aol.com> Linwood, Pa - Sunday, June 17, 2007 3:35 PM CDT Dear Laurie and Stephen, I have come here today, after seeing your note in Elizabeth Doxie's guest book, but I was here many months ago, after learning about Suryan on Jason Archer's site. I have been signing CaringBridge guest books for about three and a half years. One of my first was for Connor Hunley. I see notes from his mother, Rhonda, and from Kellie Davideit and Connie Guy. (I have signed Ian and Jeffrey's books, as well.) The list of ill children and teens never seems to stop. One of the things I remembered from being here before, is Suryan's smile. Another is the picture of him riding his mountain bike. May God bless his sweet spirit, and may God comfort, sustain, and encourage you both. Grace and peace, ~Colette We live a long way from you in the eastern part of New York, slightly north of Albany, northeast of Schenectady, and south of Saratoga Springs. We are a short drive to the Vermont border, near Bennington. Colette Clifton Park, NY U.S.A. - Saturday, June 16, 2007 3:33 PM CDT It is just so wrong that this beautiful young man should be taken fron you by this horrible beast. Praying for peace for you on earth until you meet with him again. With much love from Michigan. Angela <anji@comcast.net> brighton, mi usa - Monday, June 11, 2007 10:15 PM CDT Hi Laurie. Haven't dropped by for a while but I wanted to stop and say hi. Hope things are going well in Hawaii for you. We have a couple of trips to Florida planned this summer and I can't wait! Thinking of you and Suryan often. Peace, LeeAnn www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Friday, May 18, 2007 9:28 PM CDT A short note to let you know we think of you all often. http://www.caringbridge.org/visit/courtneymcnaught Brett and Connie McNaught <bcmcnaught@sasktel.net> Regina, Sk Canada - Thursday, May 17, 2007 6:50 PM CDT Hi Laurie, My sons still wear Suryan's t-shirt. I think of you and your precious son often. My son Mark is now 7.5 years off treatment for rhabdo and is doing Suryan proud with his skateboarding and zest for life. Sometimes I think he appreciates life a little more than others due to his experience so young. In my heart I know Suryan is riding the waves... Much love to you on Mother's Day from me. Karen Priscella <kpriscella@comcast.net> Wayland, MA USA - Tuesday, May 15, 2007 2:04 PM CDT Laurie, I am so sorry you have to have that "double" whammy. I lost my son March 28, 2007, and yesterday was hard enough for me. Please visit our site www.frankiesfight.org. My thoughts are with you. Funny how you have room to grieve for others as you are grieving, isnt it? God gives us that strength, we are all one family. God bless. Monique <frankiesfight@aol.com> phila, pa usa - Monday, May 14, 2007 8:40 AM CDT Oh, how my heart aches to read your words. I will be thinking of you tomorrow on this day of all days. Blessings to you. Jan Pitman forever Mom to Micah 12-22-89 to 8-17-03 dx: Stage 4 RMS alveolar type, trunk w/mets Jan FL USA - Saturday, May 12, 2007 10:01 PM CDT We just dropped by to check on you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, March 28, 2007 1:38 AM CDT I am sure you miss your son every day. My sister recently lost her only child in a car accident, and I know how devastated she is and how empty and quiet the house is without him and all his friends in and out. Wishing you all the best, I know the grief is a huge burden to bear. Chris & Gooch <chrisrusso_@hotmail.com> - Monday, March 26, 2007 7:54 PM CDT Thanks for your recent message, Laurie. Funny thing; I was just on Suryan's site last nite!! I was very pleased to see that you have reached over $50 000!!!! I'm still planning on doing some fundraising through Fit2Cure.. (it's in the works!); hoping to add to your amazing efforts sooner than later. Karin's Caringbridge Site Vancouver, BC, Canada - Sunday, March 25, 2007 1:48 AM CDT Just sending some ________XXXXXXXXX_______ XXXXXXXXX_________ ______XXXXXXXXXXXX____XXXXXXXXXXXXX ________ _____XXXXXXXXXXXXXX__XXXXXXXXXXXXXX ______ ______XXXXXXXXXXXXXXXXXXXXXXXXXXXX _______ _______XXXXXXXXXXXXXXXXXXXXXXXXXX________ ________XXXXXXXXXXXXXXXXXXXXXXXX_________ __________XXXXXXXXXXXXXXXXXXXXX __________ ____________XXXXXXXXXXXXXXXX _____________ ______________XXXXXXXXXXXXX ______________ ________________XXXXXXXXX ________________ __________________XXXXX __________________ ___________________ XX ____________________ ______________________________________________ To you, From Everyone at Post Pals www.postpals.co.uk viks <viks@postpals.co.uk> - Monday, March 12, 2007 9:05 PM CDT Just stopping by to say  to you, Love Viks  viks <viks@postpals.co.uk> - Monday, February 12, 2007 12:13 AM CST Hi Laurie and family, Glad to see you are dong well and continuing your good work. Good Luck with the garden!! Karen & Donal Fleming, Ciara's parents Rhabdo List , www.caringbridge.org/ga/ciarafleming <flemard@bellsouth.net> Atlanta, GA USA - Sunday, February 11, 2007 2:40 PM CST Hi Laurie. I'm very jealous of you living in Hawaii! :) Just wanted to stop by and say hi. I don't check the kid's sites very often anymore, but you are all still on my mind. Peace.... www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Tuesday, January 30, 2007 8:36 PM CST Hi Laurie I was just checking on you today. I am glad people are still sending in for a Cure. I had a quiet Christmas too. I guess when you lose a child it will never be the same. Love Colleen Rob's forever Mom Colleen Faulkner <Fleebis@aol.com> Linwood, Pa - Tuesday, January 9, 2007 9:59 PM CST We just dropped by to check on you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Friday, January 5, 2007 4:03 PM CST Dear Mr. Hallmark, I am writing to you from heaven, and though it must appear, A rather strange idea, I see everything from here, I just popped in to visit, your stores to find a card, A card of love for my parents, as this day for them is hard, There must be some mistake I thought, every card you can imagine, except I could not find a card, from a child that lives in heaven, they are still a parent too, no matter where I reside, I had to leave, they understand, but oh the tears they cried, I thought that if I wrote to you, that you would come to know, that though I live in heaven now, I still love my parents so, they talk with me, and dreams with me, we still share laughter too, memories are our way of speaking now, would you see what you can do? my parents carry me in their heart, their tears they hide from sight, they plants flowers in my garden, there my living memory dwells, they writes to other grieving parents, trying to ease there pain as well, so you see Mr. Hallmark, though I no longer live on earth, I must find a way, to remind her of her wondrous worth, they need to be honored, and be remembered too, just as the children of the earth will do, thank you Mr. Hallmark, I know you will do your best, find a way to tell them, how much they mean to me, until I can do it for myself, when she joins me in eternity. I know Christmas must be so hard for you although I can't comprehend how difficult it must be. All my love, Viks viks <viks@postpals.co.uk> - Friday, December 22, 2006 7:46 AM CST I was really hoping to make it home for a visit before you moved, but I guess my schedule wasn't going to let that happen. I hope you have a safe trip, and I will have to get better at emailing to keep in touch. And since I won't see you guys before you leave, I guess I'll have to come visit soon!!! ;-) Jenni <jedmiston@troy.edu> Troy, AL - Tuesday, November 14, 2006 7:25 PM CST We just dropped by to check on you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Tuesday, November 7, 2006 0:19 AM CST Hello, so very sorry for your loss. Our daughter, Courtney, passed away from Rhabdo on Oct 16, 2005. She was 14. Could you please include her in with the other Rhabdo Angels ? Just let us know what we can do to make this happen. Thank you. Brett McNaught <bcmcnaught@sasktel.net> Regina, Sk Canada - Wednesday, November 1, 2006 5:08 PM CST Praying that your house soon and that you all arrive at your new destination safely. Jennifer A from the prayer bears and ones who care <sassy_girl913@yahoo.com> Carrolton, Texas - Saturday, October 14, 2006 11:28 PM CDT We just wanted to drop by and say hi and let you know we are thinking about you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Friday, October 13, 2006 10:52 PM CDT Hi Laurie, Just checking in on you! I hope the house gets sold soon! Karin's caringbridge site vancouver, bc, Canada - Friday, October 6, 2006 0:18 AM CDT We just dropped by to check on you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Friday, September 22, 2006 0:52 AM CDT May God Bless your family in time of need. I found your site while searching thru Caringbridge. My nephew is currently battling osteosarcoma bone cancer. Cancer is a awful monster and we prayer that one day there will be a cure. www.caringbridge.org/visit/chrisshaw Nicole Benko <misznicole@hotmail.com> Chillliwack, BC Canada - Monday, September 4, 2006 6:20 PM CDT  I was posting this picture on Cassie's site, and thought I would swing by your page to say "hello", I hope the house gets sold soon. I'll go and say hello to JAck after signing here. Lots of love Viks       viks <viks@postpals.co.uk> - Monday, August 28, 2006 5:33 PM CDT Hi Laurie, thanks for the card. I didn't realize you had continued this website. Thanks for sharing your journey. Best wishes for a quick buyer for your house. Everyone one here sends their love. Manya & RMH friends Jax, FL - Tuesday, August 22, 2006 3:38 PM CDT hey man... i just wanted you to know that i miss you always and you'll forever be my brother... i hope you know how much you still mean to me... love you dude... this drink's for you :-) jenni troy, al - Monday, August 21, 2006 11:37 PM CDT We just dropped by to check on you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Monday, August 14, 2006 9:12 PM CDT Oh gosh Laurie, sounds like you have had your share of crap (literally!) this summer! I sure hope things work out for you. You don't know how much I would love to come down and take that house of your hands! :) School starts for us tomorrow, so back to the routine. Good luck!!!!! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, In USA - Sunday, August 13, 2006 8:08 PM CDT We just thought we would pop by and check on you today, and let you know we are thinking about you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, July 26, 2006 1:47 AM CDT Hi Laurie. Wow, sounds like this move is going to be a huge ordeal. But it will definitely be the beginning of a new chapter in your life. I wish you peace and happiness as you start this new journey. Please keep in touch! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Wednesday, July 12, 2006 9:26 AM CDT  The Prayer Bears Hailee What a beautiful name. We too are going thru the big move, its so stressful, glad i am not alone. melissa <angels4hailee@cox.net> - Tuesday, July 11, 2006 7:48 PM CDT Dear Laurie, Came to know about Suryan from my Sriya's website,I am sorry for your great loss.I wish you the very best with your move and pray that peace be with you always.Suryan means bright sun according to my native language,like wise he will always be with you in sprint Take care, Sridevi Sridevi - Thursday, July 6, 2006 1:34 AM CDT We are thinking of you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, July 5, 2006 0:15 AM CDT Dear Laurie, I just visited Suryan's page yesterday and saw that the two year anniversary had passed. I'm so sorry still for your loss. Thanks for leaving a message on Jason's page. It won't be long until he will have been gone one year. David's birthday will never, ever be truly a happy birthday again, since that was the day Jason left us. Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TN USA - Sunday, June 25, 2006 8:21 AM CDT I came across your site and read your story and I was very moved by Suryan's journal. I want to let you know how brave and strong Suryan was through his journey. Suryan and his sister were very lucky to have such strong and wonderful parents. My heart goes out to you. Carol Boesch <ccbsboesch@zoominternet.net> Valley City, Oh - Friday, June 23, 2006 8:13 PM CDT We are thinking about you tday. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, May 24, 2006 10:45 AM CDT Hello! My name is Marsha and I came across your son's website and I wanted to tell you mother's day not a special day for me either because I lost my son Tyler at 22 months he gained his angelwings on June 16,2005 it was the worst thing that has ever happened to me. Tyler had a genetic disorder called mps1 hurlers, it effects almost everything in your body.I'm so sorry for your loss I feel your pain and I hope you'll pray for me, I'm expecting a baby in October and I hope everything will be alright with this baby. Well I will have you and your family in my prayers as well.If you'll like to see Tyler's website it's www.caringbridge.com, go to visit nc tylerboo. marsha jones <tonylc12@earthlink.net> four oaks, n.c. johnston - Monday, May 15, 2006 6:35 PM CDT Hi, I found your page on sharethelove.org. Your page caught my eye because I grew up about an hour from Tallahassee. I read through your journal and your two children sound wonderful. I'm so sorry for your loss and wish you a happy Mother's Day. I know you are a fantastic mom! God bless you. Sarah Harrisonburg, VA - Sunday, May 14, 2006 5:50 PM CDT Dear Laurie, This day and Mother's Day must be so hard. Thanks for continuing to update, I for one, continue to check in. I am glad you have some plans for tomorrow to help you get through the day! Karin's caringbridge site vancouver, bc, Canada - Saturday, May 13, 2006 6:46 PM CDT We just dropped by to check on you. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Saturday, April 29, 2006 11:23 AM CDT Happy belated birthday Suryan. P.S. He was a stud. haha. ~Love Leah www.caringbridge.org/va/katrina Leah Nelson <Scorchingtundra@msn.com> Raynham, MA US - Wednesday, April 19, 2006 9:25 PM CDT Hi Laurie! Sorry it has been forever since I checked in, but we got a new computer and of course I lost ALL my bookmarked pages! We were in Florida last week for spring break and I thought about you all. I knew it was Suryan's birthday, but couldn't get to a computer, so happy belated! I am having a really hard time too right now, not sure why, probably because Brock's graduation is coming up in a few weeks. How are preparations for the move going? Email and fill me in when you get a chance! Peace! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, In USA - Friday, April 7, 2006 8:45 PM CDT Happy Belated Birthday in heaven! I am a 45 year old woman battling Rhabdomyosarcoma. (5th documented woman in the world over 40). My prayers are with you and I thank you for your support and quest to find a cure. God Bless you all! Ellen Foley <irishfoley@cox.net> Wethersfield, CT USA - Tuesday, April 4, 2006 5:09 PM CDT We are thinking of you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Saturday, April 1, 2006 0:57 AM CST Happy Birthday Suryan very sorry for your loss mom, it must be unbearable for you. Chris Gooch's mom <chrisrusso_@hotmail.com> - Thursday, March 30, 2006 7:14 PM CST happy birthday suryan... jenni <islandpunk@hotmail.com> - Thursday, March 30, 2006 0:12 AM CST Hi Laurie, I was thinking of you today and wanted to let you know. John and I adopted a little girl Westie this past November from a dog pound in north Alabama and named her Daisy. She was terribly sick with the dog flu but she is completely recovered and is so happy now. She is smaller than Ozzy but she bosses him around a lot. http://www.reddlegg.com/Leukemia_info.htm Ann, Steven's Mom <ahart@troy.edu> Troy, AL USA - Wednesday, March 29, 2006 6:57 PM CST Thinking of you, keeping you in our prayers... Eva and Rodney~The Prayer Bears~ <KWfan4ever@yahoo.com> www.carinbridge.org/mi/rodneyreeves, - Monday, March 27, 2006 5:23 PM CST Praying and Thinking about you and your family always. Together with you in sadness and pain. Hugs, Deneen www.caringbridge.org/page/tiffanie Deneen Gethouas <dgethouas@state.pa.us> Enola, PA USA - Thursday, March 16, 2006 2:17 PM CST Thinking of you all...wishing you a nice weekend! Sending love and hugs, Eva and Rodney <KWfan4ever@yahoo.com> www.caringbridge.org/mi/rodneyreeves, - Friday, February 10, 2006 9:49 PM CST Thinking of you during the holidays. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Wednesday, December 21, 2005 0:57 AM CST Hi I read your message, that you left on my son's care bridge site. It would be an honor to be in the same company with your angel son as well as the many other angels we have lost. Thank you for your comforting words and prayers..........I don't know how to move ahead from this, but I guess you and the many others will be my inspiration to continue to fight this horrible demon. God Bless Colleen Rob's forever Mom Colleen Faulkner-Ebner <Fleebis@aol.com> Linwood, Pa Usa - Sunday, December 18, 2005 8:24 PM CST I know I haven't stopped by like I should but I know how hard holidays are. I wanted to let you know I am thinking of you during this supposed happy season. I know how hard it is, I miss Maxie so much. Please take care... www.caringbridge.org/va/maxie/ Christy (mom to superstar Maxie) <imaqt430@aol.com> Amelia, VA - Thursday, December 15, 2005 11:15 PM CST Something led me to your site tonite and by reading your entries, I feel the heartache you are experiencing. Wanted to let you know I stopped by and am thinking of you during this difficult time of year. Karin's caringbridge site <kdubois@telus.net> vancouver, bc, Canada - Tuesday, December 6, 2005 5:44 AM CST Thinking of you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Tuesday, November 29, 2005 11:18 AM CST Wishing you happy dreams ~Love Leah www.caringbridge.org/va/katrina Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Wednesday, November 16, 2005 10:49 PM CST Suryan we had some good times on them c/o 01 skip days I was just thanking about the good times and the surfman came to mind hope to see you again one day!!!!!!!! Leon E. O'Neal II (GRIP) <grip191@yahoo.com> Apalachicola, Fl. Franklin - Wednesday, November 16, 2005 8:01 PM CST Hi Laurie, It has been a while since I left you a note, but I often come here...just to see Suryan's smiling face. You are often in my thoughts. Yes, the holidays will be hard forever for us--such a time of family togetherness--and now without our Jason...and his birthday on December 16. www.caringbridge.org/tn/jasona/ Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TN USA - Monday, November 14, 2005 4:20 AM CST Just wanted to say hi and I'm thinking about you always. If you can't get anyone to help with the links, Jim should be home for Seafood Festival, I'm sure he'd help if you asked. Jenni Edmiston <jedmiston@troy.edu> Troy, Al - Tuesday, October 25, 2005 6:44 PM CDT Hi Laurie. Sending you good thoughts today on Ayan's birthday. I hope you find the memories conforting. I know it will be hard when in January when Tessa turns 16, the age Brock was. Always crossing my fingers for you when I see bad weather headed your way. Let me know you're ok when it's all passed! :) Peace! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Saturday, October 22, 2005 5:45 PM CDT Hi Laurie. Just wanted to stop in and say a quick hi. Glad you survived the recent weather unscathed. I was wondering about you. Peace..... www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Tuesday, September 27, 2005 7:13 PM CDT Have an awesome Memorial Day. ~Love Leah www.caringbridge.org/va/katrina www.freewebs.com Leah Nelson <ScorchingTundra@msn.com> raynham, MA US - Thursday, September 1, 2005 9:43 PM CDT I'm sorry to hear about your mother. My grandmother passed away exactly two months after Vanessa. I hope that Suryan is with his grandmother and Vanessa with her great-grand mother. Even as I type that message I want to scream that that is not what I want, I want Nessa BACK! Things are too raw for me yet. I hope that the day comes when I am able to feel something other than anger and sadness. You give me hope that I will someday reach that point. Deborah www.caringbridge.org/ca/vanessamartinez Deborah Martinez Forever Vanessa's Mommy <debra126@comcast.net> Madera, CA United States - Monday, August 22, 2005 0:18 AM CDT I'm so sorry about your mom. Atleast she gives Suryan more company up there. ~Love Leah www.caringbridge.org/va/katrina www.freewebs.com/tacatac Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Saturday, August 20, 2005 6:32 PM CDT Hey Laurie, just stopping by to say hi. How's all the house stuff coming? Hoping you made it through the storms ok. Talk to you soon. P.S. I love wearing the JamaFest shirt around here....since people have no idea what it means, I get some pretty interesting looks! ;) www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Saturday, August 13, 2005 9:44 AM CDT I want you to know we are thinking of you today. Jodi and McKayla Jodi Phelan <jodiphelan@hotmail.com> Sherwood Park, AB Canada - Thursday, July 14, 2005 3:19 PM CDT I hope you all have an awesome week! ~Love Leah www.caringbridge.org/va/katrina Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Wednesday, July 6, 2005 9:53 PM CDT Hi Laurie, I wanted to sign in to let you know I am thinking of you. You are not forgotten - and Suryan certainly isn't either (even though I never met him!) It must be so hard to have gone through his things, but as you said - Suryan would be SO proud! I hope the move goes well. Karin's Caringbridge Site Vancouver, BC, Canada - Wednesday, June 29, 2005 2:53 AM CDT Happy Father's Day! ~Love Leah www.caringbridge.org/va/katrina Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Monday, June 20, 2005 6:22 PM CDT Happy Friday!..well Saturday now...but what does it matter. I hope all is well and your soul is feeling good. ~Love Leah www.caringbridge.org/va/katrina www.freewebs.com/tacatac Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Saturday, June 11, 2005 0:22 AM CDT I hope you have a great day and have lots of fond memories of your son. ~Love Leah www.caringbridge.org/va/katrina Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Monday, June 6, 2005 5:20 AM CDT Just checking in. I hope all is well. ~Love Leah www.caringbridge.org/va/katrina www.freewebs.com/tacatac Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Thursday, June 2, 2005 2:59 PM CDT I think how you're spreading Suryan's ashes is great. You're letting him do what he loves in spirit. ~Love Leah www.caringbridge.org/va/katrina www.freewebs.com/tacatac Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Saturday, May 28, 2005 9:23 PM CDT Thanks for starting the research fund at UPenn. My stepbrother passed away from ARMS in October. I'll be sure to tell everyone I know about it. http://www.caringbridge.com/nj/alanwinegarden Randi Randi Levine <randigoblue@comcast.net> Monmouth Junction, NJ - Tuesday, May 24, 2005 7:12 PM CDT Sleep Well. ~Love Leah www.caringbridge.org/va/katrina www.freewebs.com/tacatac Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Friday, May 20, 2005 10:09 PM CDT Have a peaceful night. ~Love Leah www.caringbridge.org/va/katrina www.freewebs.com/tacatac Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Friday, May 20, 2005 6:00 PM CDT I hope you don't mind, but I put a link to Suryan's page on my site. If you have a problem with it, just say the word and I'll remove it. Stay Strong. Know that your boy's with you every step of the way. ~Love Leah www.caringbridge.org/va/katrina My site: www.freewebs.com/tacatac Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Saturday, May 14, 2005 9:02 PM CDT Laurie, I hope you are doing ok. I know it has been a year since Suryan went to catch the big wave.....sending you a hug from Indiana! Catch up when you can! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Saturday, May 14, 2005 7:47 PM CDT Happy Mother's Day. I know Suryan's thinking about you, just as you're thinking of him on this bitter-sweet day. ~Love Leah (www.caringbridge.org/va/katrina) Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Sunday, May 8, 2005 9:03 AM CDT Hi. My name is Leah. I have another you can add to your Rhabdo angels list. My cousin Katrina died in December, 2004. She was my best friend. I hope light returns to your souls. www.caringbridge.org/va/katrina Leah Nelson <ScorchingTundra@msn.com> Raynham, MA US - Saturday, April 30, 2005 4:42 PM CDT Laurie, Just tried to email you but it came back. Has your address changed? Just wanted you to know that I'll be thinking you on the anniversary on the 13th. Take good care. Robin Leach Tallahassee, FL USA - Monday, April 25, 2005 9:58 AM CDT I found your son's page this morning and I wanted to write and tell you how wonderful I think it is that you're scattering his ashes where you know he would love to be. What a beautiful way to honor someone you clearly loved so deeply. And I agree with you - he would be proud to know that you didn't stop living because his body stopped. I'm sure he loved you very much and would want you to find happiness again. God Bless You! Lisa <lgray@usa.com> Oswego, NY USA - Tuesday, April 19, 2005 8:23 AM CDT Laure, good luck at the show tomorrow! I'm sure Suryan will be enjoying the show! I "met" a whippet while on spring break...what a cool dog! I am not usually a dog person but this little guy stole my heart! Hugs to you, and Happy Birthday Suryan! LeeAnn Barnard <lsbarnard@hotmail.com> Selma, In USA - Tuesday, March 29, 2005 9:08 PM CST What a wonderful memorial to your handsome son. Thank you for sharing your story. God blessyou. Beckie Kelley <cashbs0098@yahoo.com> Marshall, AR United States - Saturday, March 26, 2005 10:19 AM CST What a wonderful memorial to your handsome son. Thank you for sharing your story. God blessyou. Beckie Kelley <cashbs0098@yahoo.com> Marshall, AR United States - Saturday, March 26, 2005 10:19 AM CST Just thinking of you and wishing you continued strength. Debora www2.caringbridge/ca/vanessamartinez Deborah Martinez <debra126@comcast.net> Madera, CA United States - Thursday, March 24, 2005 3:30 AM CST Dear Laurie, i was surfing huge waves on the N. shore ( of Oahu ) last week and getting my butt kicked. On my last day I was thanking God for the gift of surfing and remembered to ride one for Suryan. It was a big one all the way in from a quarter mile out . i walked up the beach smiling, got on a plane 2 hours later and flew home to N. carolina. tomorrow would be Noelle's 9th birthday. As much as i miss her I know that one day she'll ride waves with Suryan and me in that great heavenly sea. God bless you for the hard work and sacrifice going towards the rhabdo research. Its effort like that that will beat this monster back to the hell it crawled out of. You go girl! Blake Wagner blake wagner <blakewagner1@charter.net> - Thursday, March 17, 2005 11:01 PM CST Hey Laurie. Just stopping by to say hi. We are heading to Fla on Friday for spring break. I'm looking forward to some nice weather....talk to your weathermen for us, ok? ;) Good luck at the shows....sounds like you will be a busy gal! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Wednesday, March 16, 2005 7:21 PM CST My heart breaks for your loss of such a wonderful son. His legacy will be one of enduring dedication in those of us left here fighting Rhabdomyosarcoma in our loved ones. My grandson, Killian, was diagnosed October 8, 2001 and underwent all the treatments at Shands at the University of Florida. He has been finished with treatment and in remission for a little over two years. His most recent CTs at Egleston Children's Hospital in Atlanta...he and my daughter moved up to Smyrna in June of last year... :(... show a shadow on one lung so they'll be scanning him again in May. We pray for his continued good health and we will stay in touch. The research at Penn is so exciting! How can we best get the word out? Let me know what I can do to help. Know that Suryan is in our prayers too. What a blessing he was to you and all who knew him. Kathleen Murff-Whiting <RKMURFFWHITING@aol.com> Gainesville, FL USA - Monday, March 7, 2005 12:28 AM CST Dear Laurie, It has been a long time since I wrote in your guestbook, though I have visited often to see Suryan beautiful smile. I was so afraid from the beginning that Jason would go down the exact same path as Suryan and now it appears his cancer is progressing rapidly. I feel sort of numb. How can this really be happening? Thinking of you and Suryan. Pam - Jason's mom www.caringbridge.org/tn/jasona/ Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TN USA - Tuesday, February 15, 2005 2:48 AM CST Dear Laurie, thank you for your update and also for checking in with me. Thank you for being so open on your website. Please know that I think of you often as do many, many others. I was pleasantly surprised to see my friend Andrea has stopped by here and got to experience Suryan's spirit through this website! She is an amazing person with inspiring courage like Suryan. He must be proud of all the efforts you are taking to bring awareness to rhabdo and I would like to THANK YOU for that too. Karin's Caringbridge Page vancouver, bc, canada - Monday, January 31, 2005 10:11 PM CST Hi Laurie, I have been sitting here crying....looking at Suryan's photo....how happy he looks. My son Kenny was diagnosed in 1996 with stage 4 rhabdo.....he has been off therapy now for 7 years. I feel so blessed and yet so terrified. Suryan has touched so many lives and his story needs to be told...for all of the children who have yet to be diagnosed with this horrible disease. May God bless you for sharing your son with all of us.... Laura Pierce <laurapierce3@bellsouth.net> Kennesaw, GA USA - Sunday, January 30, 2005 8:22 PM CST Dearest Laurie, I am visiting from my friend's, Karin, page. I am a twenty-two year old rectal cancer survivor. I have metastatic disease, so the goal is supposedly palliation (although, I'm still holding out for a cure). Although I'm sure you have heard it a thousand times before, Suryan's life offers so much inspiration and rekindles hope. He is my hero! I have continued with school as well and will hopefully be graduating this spring from McGill. I wish with all my heart that Suryan could be here today. I wish, I wish, I wish. I wish that no person ever had to face this awful disease called cancer. Know that I will be thinking of Suryan often. His love for his family is obvious and there is no doubt in my mind that he continues to watch over you and your husband. If I leave this life before my mother I know I want her to continue to pursue happiness. I am not a mother and I know that I cannot fathom the pain of losing a child but I do hope for your peace and healing. Lots of love, Andrea Andrea Elder <andreaelder145@hotmail.com> Montreal , QC Canada - Sunday, January 30, 2005 5:20 PM CST Laurie, You've been on my mind so much lately. Wishing you peace. Love, Natalie Martin-Rak (caringbridge.com/fl/lina) <natalie@Dentxllc.com> Jacksonville,, fl - Friday, January 21, 2005 7:17 AM CST I read through your journal entries with my three year old daughter by my side. She wanted to know why I was crying and I showed her your pictures and told her about how Suryan is an angel in heaven now. Suryan's determination to finish classes, even when going through chemo, inspires me as I am completing my last few classes towards my degree. Since becoming a mother my biggest fear has been that something would take me away from my daughter without her knowing how much I deeply love and care for her. It is clear from your story that Suryan knew how much his mother loved him. I know that he is watching over you and continues to send you his love from up above. You, your family, and your quest for a cure are in my prayers. Anna Conner <annatconner@lycos.com> Wilmington, DE - Tuesday, January 11, 2005 4:18 PM CST Laurie, sorry about the weather in New Orleans for you! I HATE the cold too, although I have lived in Indiana all my life. The pics on Suryan's website look exactly like where I would love to live! Any houses empty in your neighborhood? ;) With the ice storm here, I could be talked into packing up and coming down! Good luck with the puppies! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Saturday, January 8, 2005 5:14 PM CST Laurie; Our hearts go out to you for your loss. Our prayers and thoughts are with you. May Suryan ride the Great Wave forever in peace. Bryn, Tiffini, David & Family <bryn@brytr.com> Sterling, VA USA - Thursday, January 6, 2005 7:37 PM CST Laurie, Thinking of you on this Christmas Day. Our children are together today, that brings me some comfort. We feel and know your pain. Wishing peace for all of us...... We love you, Rhonda and Eddie, Forever Connor's Mommy and Daddy <rshunley@comcast.net> Hendersonville, TN USA - Saturday, December 25, 2004 9:24 AM CST Dear Laurie, I think about you, Stephen and Suryan daily and have been saying extra prayers for you this Holiday season. You are an amazing family and we are grateful that you shared Suryan with us. My favorite place to visit is Florida and we love the ocean and I will never look at again without thinking of your precious Suryan. Extra Hugs, Denice - Mother of Michael age 5 dx 10/02 EARMS stage 3 - www.caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ 07417 - Wednesday, December 22, 2004 9:46 PM CST Hi, Laurie and Stephen -- We're thinking of you every day, knowing that this is a tough Christmas. New Orleans was a great idea, and for New Year's you're welcome to come join us at a big bonfire on the beach, dancing around and hooting and burning all mementos of 2004. Years don't get much tougher than this one. We love you -- Rebecca, Steve, Caroline, and Owen Rebecca Cocoa Beach, fl us - Wednesday, December 22, 2004 1:26 PM CST Hi Laurie. Let me know if New Orleans works out....I would really like to go plant myself under a palm tree somewhere and sip umbrella drinks till about April! Hugs to you from cold, winter weather warning Indiana! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, In USA - Tuesday, December 21, 2004 8:25 PM CST Laurie, I was just thinking about you today and stopped by to say Hi. Thanks for all your kind words and support. You are in my prayers. Love, Pam - Jason's mom www.caringbridge.org/tn/jasona/ Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TNu USA - Tuesday, December 14, 2004 3:28 PM CST Laurie, I lost my mom, my best friend, in April and I can't begin to tell you how hard it has been just to keep on going. I know exactly how you feel- I lost my golden to cancer 3 weeks ago - it brought all the thoughts of my mom's struggles rushing back. As I read your entry today, I saw so much of myself and how deeply alone I feel - I wish I had the words to make it better for you - I try to think about all the wonderful times we had together - I get really angry at times, it so hard to accept - -I just want more time as I am sure you feel the same. Try and hang in there and enjoy your time with your husband-I am not sure if the ache inside will ever go away. all the best, Ricki Ricki Lasky <ricki.lasky@pinehurst.com> Pinehurst, nc - Tuesday, December 14, 2004 8:44 AM CST Hi Laurie - I just wanted to let you know that I wear my t-shirt often with Suryan's name on it.......I've had you and Stephen on my mind, especially now that it's holiday time. I can only imagine how hard it is. Hope you can get through a little of every day at a time......You are loved. Amy Green, mom to Paxton <greena@schoolcraftschools.org> Portage, MI USA - Monday, December 13, 2004 12:47 AM CST Hi Laurie - I just wanted to let you know that I wear my t-shirt often with Suryan's name on it.......I've had you and David on my mind, especially now that it's holiday time. I can only imagine how hard it is. Hope you can get through a little of every day at a time......You are loved. Amy Green, mom to Paxton <greena@schoolcraftschools.org> Portage, MI USA - Monday, December 13, 2004 12:46 AM CST Hi laurie I just thought i would drop you a note to let you know that I've been thinking of you & Suryan. Your bracelet sounds beautiful....what a thoughtful gift. Cheryl Shane's mommy Cheryl http://www.caringbridge.com/ct/lilshane/ <mommyxtwo@sbcglobal.net> ct - Tuesday, November 30, 2004 7:52 PM CST Hi Laurie, I'm new to Suryan's site. I'm so sorry for the loss of your wonderful son. Such a handsome guy....he really does light up the page...the pictures are great. I think the foundation you have set-up in Suryan's behalf is awesome. I will continue to pray for you and your family and stop by to visit. God Bless. Kathy-mom to David caringbridge.org/fl/david kathy cummings/david fitting <joy2jak@adelphia.net> boynton beach, fl usa - Saturday, November 27, 2004 6:54 PM CST Laurie and family, Just want to let you know that I am thinking of you all this morning. I know that our children are celebrating Thanksgiving in Heaven TOGETHER on this day. Even with that knowledge, the human side of us doesn't miss them any less. Today and every day.... Thank you for your friendship, we feel and share your pain. Love and hugs, Rhonda and Eddie, Forever Connor's Mommy and Daddy <rshunley@comcast.net> Hendersonville, TN God Bless America! - Thursday, November 25, 2004 8:12 AM CST Hello I haven't checked in a while. But I wanted to say Happy Thanksgiving to you, and say that I know how hard the holidays are. I wish we could just postpone them for a year. But Maxie would want me to go on. And Robert would not know what to think. He gets so excited at every package that comes. Thinking of your Suryan(love that name)and Maxie hangin and Maxie learning how to surf. www.caringbridge.org/va/maxie/ Chirsty (mom to superstar Maxie) <imaqt430@aol.com> Amelia, VA - Thursday, November 25, 2004 6:07 AM CST Hi Laurie, I am so glad that the funds will help. I am not exactly looking forward to christmas shopping - trying to get what I can done before the stores get crowded and then internet shop! (We have to do Santa for the other kids). Hang in there... Kellie Davideit <kelbri27@optonline.net> Metuchen, nj usa - Wednesday, November 24, 2004 7:48 AM CST Hi Laurie. Just dropping by to say hi. I know how you feel, some days I miss Brock so much, he was my best buddy. Doing things feels strange without him. But for Tessa, I keep plugging alond. Hope you find some peace for the holidays....I know I will be looking too! Hugs! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Saturday, November 20, 2004 10:05 AM CST Hi Laurie, I was thinking of Suryan today and thought I needed to jump on here to let you know. I think I have already told you, but I always looked up to Suryan. We were undergoing treatment at the same time, and I remember reading your emails on the list saying Suryan was off camping with his friends!! I couldn't imagine just how he got the strength to do that, when I was comtemplating whether I was strong enough to walk around the house that day. Throughout his treatment, he kept on going, being active and out on the ocean surfing (!!). The inner and outer strength he must have had, that DRIVE to go out and really live, still amazes me. Thinking of you. Karin http://www.caringbridge.com/canada/karin vancouver, bc, canada - Thursday, November 11, 2004 3:39 PM CST Just thinking of you, and thought I'd stop by Suryan's site. Maybe you've been on my mind because your b-day just passed?? Love to you. Natalie Martin-Rak <vladanat@comcast.net> Jacksonville, FL - Monday, November 8, 2004 6:02 PM CST Laurie, Happy belated birthday. I know it was difficult. Mine was October 17th and it was a sad day for me. Ann - Steven's Mom www.reddlegg.com/Leukemia_info.htm <ahart@troyst.edu> Troy, AL USA - Thursday, November 4, 2004 10:23 AM CST I found Suryan's site from Connor Huntly's page. Your boy jumped right off the page and into my heart. I have 2 sons and I know the love and pride a parent feels. The loss seems unbearable. I am so sorry for your family and I will keep you in my prayers. You are so lucky to have had such a beautiful child. Pam Morris <pammorris@peoplepc.com> Roswell, ga - Wednesday, November 3, 2004 6:50 AM CST Hi Laurie. I am sorry I am late for Ayan's birthday, but I wanted to let you know I was thinking about you. Happy birthday to you too, although I know mine just passed a few weeks ago, and it wasn't all that great. Hang in there... www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, In USA - Saturday, October 30, 2004 8:37 PM CDT Even though I didn't not know Suryan as well as Jeff & Jenni did, I still thought of him as a brother. He was so full of life and he never lost his sense of humor. I admire you so much for your strength in such difficult times. He is always in our thoughts. Sarah Edmiston <sgibeachgirl@hotmail.com> Pensacola, FL - Friday, October 22, 2004 8:35 PM CDT Laurie, I'm thinking of you today on Ayan's 18th birthday. You mentioned that you and your beautiful Suryan would go out to dinner, so now it is doubly hard. I will keep you in my thougts, and send you hugs that hopefully can help hold you up. Peace, Jan Tamayo, Angel Liam's mom (bsg) www.caringbridge.org/page/liamtamayo <tamayo2@sbcglobal.net> Sacramento, CA - Friday, October 22, 2004 7:30 PM CDT I came to your site through Brock's page...I'm so sorry Suryan is gone from sight. I know he is never gone from your hearts. He was a beautiful boy and still is...I know you will meet again one day. Love from Illinois, Jen mom to Alex, dx 04-26-04 Wilms Tumor Jen Scott www.caringbridge.org/il/alexscott <jenscott90@hotmail.com> Central, IL USA - Wednesday, October 20, 2004 12:54 AM CDT Hi Laurie, In all your visits here I never knew you had this page. Thanks for sending me the info about the run. Suryan will always be remembered and lives on in all the hearts of the people fortunate enough to have met him. I'm glad to hear y'all made it through Ivan ok. Know that you are often in my thoughts and prayers, Love Manya Manya <MStone@rmhjax.org> Jacksonville, FL USA - Monday, October 18, 2004 1:53 PM CDT Hi Laurie. I just read your post on Day by Day, and came to your site to "meet" Suryan. What an awesome kid! He reminds me so much of my son Brock, whom I lost in February at the age of 16. He was my best friend too, and I can relate very much to so much of what you have written. Thanks for sharing Suryan with us, and I hope we can keep in touch! www.caringbridge.org/in/brockbarnard LeeAnn Barnard <lsbarnard@hotmail.com> Selma, IN USA - Sunday, October 17, 2004 8:44 PM CDT Laurie, Glad to hear that you made it through the storms alright. I use Steven's laptop as my home computer. John, Ozzy, and I enjoyed our trip to the north Georgia mountains and the town of Helen. (I would recommend the mountains for the holidays trip, Georgia and Alabama have great locations). We stayed at Unicoi State Park and were there when Ivan went through. A tree fell on our camper, which we'd only had for 3 months, but it wasn't too much damage and no one was hurt. It's in the shop for repairs. We still had a great time and are ready to go again when we can. I dread the upcoming holiday season as well. Last week while at the grocery store I started crying when I saw the pumpkins, thinking about the jack-o-lanterns I made for Steven. Some times the least expected things at the most unexpected times can do that to a person. Take care. Ann (Steven's Mom) www.reddlegg.com/Leukemia_info.htm <ahart@troyst.edu> Troy, AL USA - Wednesday, October 6, 2004 9:35 AM CDT Laurie, Thanks you for coming to my sister's site. I am very sorry that you lost Suryan to this disease. My thoughts and prayers go out to you and your family. Hopefully we can all get enough money raised to cure this demon. Take care. www.caringbridge.org/pa/brynnwlodyka Bree Wlodyka <Bree.A.Wlodyka@gsk.com> Drexel Hill, PA 19026 - Tuesday, September 28, 2004 11:35 AM CDT Laurie, Just checking in to see how you guys are following Ivan. Praying that you had no damage and that you are well. I think of Suryan often, and of what a courageous fighter he was. Have a good week.... Love and hugs, Rhonda Hunley, Connor's Mom **Connor's page** <rshunley@comcast.net> Hendersonville, TN God Bless America and our Troops and Leaders! - Monday, September 20, 2004 9:06 AM CDT Hi Laurie, Just wanted to say hi and hope that Ivan steers clear of you. A friend of mine is running the Marine Corp Marathon in DC to benefit both St. Jude and the Alveolar Rhabdo Fund on October 31st. Please let me know when the article comes out on Dr. Barr. Stay safe and Ivan-free. Kellie Davideit (www.caringbridge.org/nj/ian) <kelbri27@optonline.net> Metuchen, NJ USA - Monday, September 13, 2004 11:41 PM CDT Hi Laurie, I don't know you or Suryan but I was just looking at your site and had to post a note and send you a hug from another parent who lost a daughter to Rhabdo. Bonnie (my ex-wife)and I want to get involved in anything and everything we can to raise funds for finding a cure for this beast and all childhood cancers. No child or young adult should have to endure what your son or my daughter had to. These kids are so strong and have such a positive outlook inspite of everything. My heart and prayers go out to you and your family. I know you miss him greatly as I miss Lindsay more and more every day that goes by. www2.caringbridge.org/ny/lindsaym Steve MacIver (Lindsay's Father) <ninetywest@yahoo.com> Niagara Falls, NY USA - Monday, September 13, 2004 9:05 PM CDT Hi Laurie, How exciting, the puppies are here! John and I feel the same way about getting away for Christmas. We haven't put up a tree since Steven has been gone and don't intend to. We are going to Helen, Georgia next month and are looking forward to getting away for a while. Take care, we keep you in our thoughts. Ann /Steven's Mom www.reddlegg.com/Leukemia_info.htm <ahart@troyst.edu> Troy, AL USA - Friday, August 27, 2004 9:04 PM CDT I don't know you but saw your post on the sarcoma list and checked out your website. It's wonderful. Suryan sounds so much like my son Brandon. He passed 11 months ago after 3 years with osteosarcoma at the age of 22. Just wanted to send a huge hug from one parent to another!! Lindy Eddinger <lleddinger@yahoo.com> Houston, TX USA - Friday, August 27, 2004 8:44 PM CDT Hi Laurie, Thanks for all the good work you are doing getting the word out about rhabdo. I can not think of anything finer to do to honor the memory of a remarkable young man. Joan, mom to Ali, dx stage 3 alveolar rhabdomyosarcoma 9/96 - Saturday, August 14, 2004 3:36 PM CDT Dear Laurie, thank you for keeping up this website and carrying on with updates. I feel I can still get to know Suryan through the testimonies in his guestbook. I will never forget him! Karin http://www.caringbridge.com/canada/karin vancouver, bc, canada - Tuesday, August 10, 2004 4:30 PM CDT I wish I had known about Suryan while he was still in Tallahassee. As a sarcoma victim myself, I would love to have had an opportunity to talk to him. Do you live at St. George Island year round? We have made many day trips there to enjoy the sand and surf. Was Suryan treated at Mayo in Jacksonville? I am doing my follow ups at H. Lee Moffitt in Tampa - I have been very fortunate to be "clear" of disease for the last four years. Anne White <awhitefsu@comcast.net> Tallahassee, FL USA - Sunday, August 1, 2004 2:41 PM CDT i miss him so much, not a day goes by where i don't think about him...all the good times had. i just wish i could play one more song or catch one more wave with him. i remember going to hawaii and surfing with suryan, the first time out, looking at those big waves and being scared, but my fears were then relieved paddling out with suryan who had no fear, and never did. he's the bravest person i've ever known. he made you feel like you could do anything and he was always up for anything as well...i feel closest to him when i'm on the island and even more so when i'm in the water, catching waves, becuase i know he's right there with me chearing me on to paddle harder and laughing when i wipe out. thanks Justin < WHITE866@tccemail.fl.edu > Tallahassee, FL USA - Sunday, August 1, 2004 1:08 AM CDT Dear Laurie, Thank you for taking the time to come and visit with me today while you were in Troy! It was great to get to meet the Edmiston ladies too! We'll be thinking about you in Kentucky next weekend and wishing you all the best. Please let us know how it goes. Love, Ann (Steven's Mom) www.reddlegg.com/Leukemia_info.htm <ahart@troyst.edu> Troy, AL USA - Wednesday, July 28, 2004 1:24 PM CDT Dear Laurie, Hi! I stop by every few days, but haven't signed the guestbook in a while. I always love the pictures of Suryan. Hope the race is a big success. (One of Jason's wishes is to go on a beach trip with his friends, so during the time of the race that's where we are supposed to be-at Gulf Shores, Alabama--sort of near you all.) I know Suryan would be so proud of you and what you are doing. You are never far from my thoughts. Praying for God's blessings and comfort for you. Pam <davidandpam.archer@comcast.net> Hendersonville, TN USA - Sunday, July 25, 2004 11:53 PM CDT I AM SO SORRY FOR YOUR LOSE BUT FROM THE PICTURE THAT I HAVE SEEN OF YOUR SON HE REALLY ENJOY THE LIFE HE HAD AND FROM WHAT I SAW YOU'LL LOVE EACH AND THAT IS WHAT IS IMPORTANT AND WITH GOD HELP AND PRAYER HE WILL BE WITH YOU AND YOUR HUSBAND ALWAYS DON'T WORRY ABOUT HIM GOD WILL TAKE CARE OF HIM UNTIL YOU MEET AGAIN, GOD BLESS YOU BOTH. NAN ROEBUCK <n.roebuck@l-com.com> PENSACOLA, FLA U.S.A - Friday, July 23, 2004 7:25 PM CDT Dear Laurie, My heart goes out to you and your family. I lost my daughter to osteosarcoma 10/11/02 at the age of 19. Like you it seems so long ago and just yesterday all at the same time. I am in the midst of a memorial fundraiser (our 2nd) to benefit the Sarcoma Foundation of America, an organization that awards grants for NEW sarcoma research. I encourage you to persue your ideas in that line. It has helped keep Lisa's memory alive for me, esp the fun-loving, carefree parts that so endeared her to us. Please know that I carry you in thought and prayer... Suryan was certainly blessed. Love and hugs, Sandy Sandy Wawczak <go2sandy@comcast.net> Wheeling, IL USA - Wednesday, July 21, 2004 7:32 PM CDT i will definitely be there to run for suryan. i'm on the island, i'll stop by the house to see you either tomorrow or wednesday. much love jenni <jedmiston@troyst.edu> troy, al - Monday, July 5, 2004 10:41 PM CDT Laurie.... the photos are beautiful... thank you for continuing to share Suryan with us.... grief is a long road but it is easier when you are able to rejoice in the memories of Suryan's life with you and continue to work in his name. Robb Kidd (Rhabdo list) <rnk@kingston.net> Kingston, On Canada - Sunday, July 4, 2004 8:07 PM CDT I am so sorry for the loss of your son, He sounds like such an amazing kid! I know you dont know me, I am best friends with Jeff Newbauer, I believe you speak with his mom(Connie). I just wanted to let you know you will from this day forward be in mine and my families prayers. From the words from your journals you a truelly an amazing woman who has conqured more than some of us can bear to think about. May God Bless you! Kelly <Kelly1837@adelphia.net> Twinsburg, Oh - Monday, June 21, 2004 3:32 PM CDT Laurie, We're thinking of all of you. It's been over 2 years now since Steven's been gone and we haven't really changed anything in his room. I've heard many parents say that until they were ready to go through their child's room and belongings that it was just fine not to. Some of us are not ready to do that for many years and there's nothing wrong with that. Especially since we don't need to use the room for anyone or anything else. We are glad that it can remain the same for now. Hugs, Ann and John <ahart@troyst.edu> Troy, AL USA - Friday, June 11, 2004 12:42 AM CDT Hi Laurie, We live in TN. I post messages on the Rhabdo-Kids List. My son Jason was diagnosed in Feb with stage 4 ARMS in left foot and bone marrow. I think of you all every day. I can't see a picture of the ocean waves rushing in to the beach without remembering Suryan. I keep you in my prayers. Pam Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TN USA - Wednesday, June 9, 2004 10:49 AM CDT Just wanted you to know that even though I'm back in Troy, I'm still around if you need anything. Jenni <jedmiston@troyst.edu> - Saturday, June 5, 2004 12:32 AM CDT What a great mom & dad Suryan had......and how lucky you were to have such great kids!! I also know how people kind of fade away after a death. especially of a child, they truly don't know what to say. Ryan will be dead (Rhabdo also) 13 years in August; it seems like an eternity and it seems like yesterday. Sometimes people don't want to deal with the loss of a child when they're facing their own. I've posted in quite a few guest books of rhabdo kids & even written emails offering my love & support. The usual answer has been "Thanks, maybe I'll want to talk to you later." I took it personally in the beginning but now tend to just offer love & support via mental telepathy! :-) As parents, none of us want to think anything but a cure....it's only natural, but as we know, that doesn't always happen. It seems like Suryan had a remarkable life right up to the end; he was so lucky, as were you to be left with those precious memories. Hang on to those memories and NEVER let them go. Both Suryan and your daughter will always be with you that way. Love, Pat Pat <patricia.manning@comcast.net> antioch, ca usa - Tuesday, June 1, 2004 11:58 AM CDT Hi Lori (and Donna!), I know what you mean about it being weird to write in the journal after they are gone. I'm glad Donna is there with you and that you two have become such good friends. She seems like a really good person to have on your side. Course as you said...you've been down this road before (in my opinion that would make it all the harder) and you know what "things" to expect. I am very proud of you Laurie for the way you've dealt with everything and for your new relentless effort in raising funds for research. Keep your chin up and keep that drive going!!! Talk to you soon. You are never far from my mind. Tell Donna I said hello. Oh, and remind all your friends that I am still running the special on Suryan's candle till the 13th of June (the donation special). Cathy <cathyscndls4kids@aol.com> MO - Tuesday, June 1, 2004 5:50 AM CDT I have had all of you on my mind so much. I hope your lovely man is teaching Maxie how to surf. My brother who passed in 86 was a surfer so maybe they are catching a wave. What a beautiful thing that they did in his honor I am sure Suryan would of been pleased. Take car and my thoughts are with you. www.caringbridge.org/va/maxie/ Christy (mom to superstar Maxie) Rhabdo Stage III dx 7-23-03 <maxiewithlove@aol.com> Amelia, VA - Sunday, May 30, 2004 8:21 AM CDT Dear Laurie, I have been thinking of you so much the last few days and am so glad to hear that the memorial went so well. It sounded awesome. You are a great mom, always remember that. What a wonderful kid Suryan was, mostly because of your influence and love. I am worried for you now... how are you? I can only imagine the extreme agony you must feel but hope that you are able to know that the Lord is good and that He has more wonderful things yet to come in life for you. I am praying for smiles in your and Stephen's lives, Laurie. You certainly deserve them. Will continue thinking of you often. Love, Gail Gail Record <Grecord@Juno.com> Cedaredge, CO - Tuesday, May 25, 2004 10:21 AM CDT Laurie and Stephen,,,,,,,,,read your tribute and know only so well what your feeling....our daughter Alison had something so similar....this was her graduating class and yesterday I spoke to her classmates at their Baccaluerate service at their high school and played Alison singing to them just weeks before she passed away.... Our children touched many lives and I am so proud of both...If we can ever be useful to you please let us know...Amy, my wife sent you a note some days ago on the Rhabdo site......you are in our thoughts and prayers....our email is cmenales@avci.net and Alison's story and continued updates appear at www.novestachurch.org and just click on Alison.........God bless you and your God family. Chuck,Amy&Craig Emmert, Cass City, MI Chuck Emmert <cmenales@avci.net> Cass City, MI USA - Monday, May 24, 2004 2:09 PM CDT Laurie, Your celebration of Suryans life sounds like it was perfect. I have you all in my constant thoughts and prayers. Hugs, Denice-Mother of Michael age 5 dx 10/12 stage 3 Rhabdomyosarcoma-caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ - Monday, May 24, 2004 2:05 PM CDT Laurie, What a beautiful, beautiful celebration of Suryan's life. No doubt that he was looking down on all the people that loved him so. And though he may be gone physically from your side, know tht with each wave that reaches the shore, comes Suryan's GREAT spirit and all the memories that you were able to make with him. Thinking of you and praying for strength and comfort. Sincerely, Carol mom to McKenzie, 20 months, Rhadomyosarcoma Carol Fleming <scfleming27@hotmail.com> Moultrie, GA - Monday, May 24, 2004 8:33 AM CDT Thinking of you today as I did yesterday; I'm sure that Suryan smiled down on the memorial which I know was a beautiful tribute to such a wonderful young man. Never forget how much he loved you & how very proud you make him. Love, Pat <patricia.manning@comcast.net> antioch, ca usa - Monday, May 24, 2004 8:00 AM CDT Just wanted you to know that i am keeping yall in my thoughts and Prayers. Lots of love Melissa <cart30@cox.net> Cantonment, Fl USA - Monday, May 24, 2004 0:17 AM CDT Laurie and Stephen, I will be thinking about you today and holding you close as you say so long to yet another child. That is just an unthinkable peril and yet you are forced to face it. I guess we just never know what life is going to throw at us do we? And the question of "why" just hangs there so heavily yet we never really get an answer (not in this life anyway). I wish I could be there with you today but just know that I am there in spirit. It's a little ironic that on the day you are having Suryan's Memorial I will be at a high school graduation giving Sabrina's "Memorial" scholarship away. Love and Hugs, Cathy, mom to ^i^ Sabrina^i^, my hero and the wind beneath my wings <cathyscndls4kids@aol.com> Bernie, MO - Sunday, May 23, 2004 4:45 AM CDT I'm so sorry that Suryan died. His life was an example of perseverance in the midst of adversity. I will long remember his smile and "go for it" attitude. I know the sorrow of losing a child, and I am praying for you during this time of grief. Stephanie & RachelJoy <sstrom@quik.com> - Friday, May 21, 2004 9:13 PM CDT Thinking of you today. Love, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> jacksonville, FL - Friday, May 21, 2004 8:33 PM CDT my heart breaks for you and i am so sorry for your loss. your family is my thoughts and prayers. i absolutely love suryan's lemongrass. shelia shelia stanfield <sstanfield@aeincmo.com> springfield, mo - Friday, May 21, 2004 10:20 AM CDT Lauri, I know exactly how you feel. I have tried to focus on the positives, how extremely lucky I was to have my mom in my life as my best friend. Suryan was taken much too quickly but it sounded as if he enjoyed his life to the fullest and had so much love and support around him. He will always be with you -hold on to that...All the best on Sunday... Ricki Lasky <ricki.lasky@pinehurst.com> Pinehurst, NC - Friday, May 21, 2004 8:47 AM CDT Mrs. Laurie, I haven't had the strength to stop by but I wanted you to know that if you need anything I am here. Suryan meant the world to me, he was an awesome person and I considered him to be family. I will stop by soon I promise. Much love, Jenni <jedmiston@troyst.edu> SGI, FL - Thursday, May 20, 2004 9:40 PM CDT I am so shocked to learn about Suryan! I hate this monster, it took both our wonderful sons and I am mad! I will definently send some money for research. I hope your son is teaching Maxie how to surf. What a great thought that is. I am walking in your shoes now and I feel your pain. Love to you and your family. www.caringbridge.org/va/maxie Christy (mom to superstar Maxie) <maxiewithlove@aol.com> Amelia, VA - Wednesday, May 19, 2004 4:36 PM CDT Hi Laurie and Stephen, I was so saddened when Deb told me about Suryan passing away, but I was also glad that he felt well enough up to to the end to do the things that he loved. Ayan and Suryan will always be in our hearts and minds. Allison, Kimberly and I send our thoughts and prayers to you. We think of you often and will think of Ayan and Suryan,when we look at the clouds in the sky, picturing childhood memories and dreams. Take care, Jody Jody Turano <westjody@prodigy.net> Grand Junction, co usa - Tuesday, May 18, 2004 11:51 AM CDT Thinking of you & hoping that the wonderful memories that you have of Suryan (there are SO many) are helping to make the days a little more gentle. Love, Pat Manning <patricia.manning@comcast.net> antioch, ca usa - Tuesday, May 18, 2004 11:10 AM CDT Dear Laurie and Stephen, I think of you all every day and have been praying for you. Pam Archer <davidandpam.archer@comcast.net> Hendersonville, TN USA - Tuesday, May 18, 2004 10:17 AM CDT Laurie and Steven, Was notified by Arielle (my daughter) yesterday of Suryan's passing. Margie and I have always gotten our updates through her and have rode-out the "swells" in his treatments with him and her and you for the past couple of years. We send our condolences and our prayers for comfort and understanding during this time. It never ceases to amaze us the number of wonderful people we hear about and sometimes bump into in this wonderful "current" of time that we all share. Peace and Love, John & Margie Hubbell and Family. John & Margie Hubbell Orlando, Fl USA - Tuesday, May 18, 2004 8:56 AM CDT Laurie and Family, I am so sorry for your loss, keeping you and your family in my thoughts and prayers.....sending you lots of hugs....Suryan was very courageous young man and will always be remembered. Elizabeth (mom to Travis) www.traviswhitman.com <angeltravsmom@aol.com> Texas - Monday, May 17, 2004 9:53 PM CDT Laurie, I was drawn to visit Suryan's page today, don't know why, been thinking about you and him. Some of his comments you mentioned when he was conscious reminded me of my late wife Adrienne as she was dying of cancer. She loved to surf, I know she's having a great time with him surfing an eternal wave. Lots of love and prayers, Bill dad to Leah, 15, w Stage 4 ARMS Bill Rapp <wildbill164@aol.com> Pawtucket, RI USA - Monday, May 17, 2004 6:47 PM CDT I am sorry for his loss beyond words, and wish your family strength and peace. I will keep him and your family forever in my thoughts...I will always see Suryan whenever I enjoy the true beauty of a wave... Brian Gantner <Briang@gandgindustries.com> Birmingham, mi USA - Monday, May 17, 2004 9:43 AM CDT Lean on God for the peace and healing He can provide. I am so sorry for the loss of your son. Steven Hicks (Sarah Anne's Dad) <hicks@cbse.uab.edu> Birmingham, AL USA - Monday, May 17, 2004 8:45 AM CDT Laurie and Family, Know that you are in my thoughts and prayers. Suryan is now in a place where the surfing is endless! Maybe he will teach my little Dylan a few surfing tricks! God bless you for you strength and may he give you peace! Sending hugs to you. Traci Harris (mom to Dylan, 2-21-97 to 11-14-01) <Traci1175@aol.com> - Monday, May 17, 2004 6:39 AM CDT My thoughts and prayers are with you. Regula Kummer <regula@kummer-josi.us> Toledo, OH USA - Sunday, May 16, 2004 6:04 PM CDT Hi Laurie and Stephen, I wish I could be there for Suryan's surfer memorial. I know the waves will be perfect that day. Joan, mom to Ali, dx stage 3 alveolar rhabdo 9/96 Lincoln, NE - Sunday, May 16, 2004 4:44 PM CDT This is the first time I have seen Suryan's picture. He is so beautiful. I have been crying since he passed away and will never forget his courageous spirit. What a beautiful human being -- I know he is in heaven right now with plenty of arms holding on to his precious soul. Nonie Hanson <noniehanson301@aol.com> Edmond, OK USA - Sunday, May 16, 2004 2:21 PM CDT We only really knew Suryan through Deb and Alesia. They loved him so much. They spoke of him often, of his courage and love for life.Our hearts go out to you at this time, and as always you will continue to be in our prayers. Chuck and Diane Macdonald <dlmacdon@sisna.com> Jensen, UT USA - Sunday, May 16, 2004 11:08 AM CDT Dear Laurie and Stephen: You are indeed remarkable people. It can be the only explanation as to why God choose you two to be the parents of such a remarkable young man. My dream about surfing with him was fantastic I wish you could have been there to have felt the joy and peace that Suryan exuded when he was telling me that in heaven you don't have to wait for the surf to be up it's always up.I will pray for your strength and faith and ask Suryan if he will continue to watch over Peter in spirit so that Peter uses his gift of life to the fullest. It still hurts me so to see and feel such suffering for so many. Hard to explain away but Suryan knows the answer now and so will we someday. God bless and keep you both close to His Sacred Heart. Peter's Mom: Sue Sue Partaker <pray4peace13@aol.com> Algonquin, Il McHenry - Sunday, May 16, 2004 6:35 AM CDT Thinking of you and remembering you in prayer today. Praying for strength and comfort for you. What a remarkable son you had!!! Carol mom to McKenzie, 19 months, Rhabdo www.caringbridge.org/ga/mckenzief Carol Fleming <scfleming27@hotmail.com> Moultrie, GA - Saturday, May 15, 2004 4:03 PM CDT Suryan, you can surf the clouds forever now. We love you and Ayan so much. We'll miss you both and will continue to cherish the moments we have had with you. Watch over Mom and Dad as we will all do our best to live life to the fullest. Thoughts, love, and prayers, Deb and Alesia. Deb Franklin <dolphindeb68@aol.com> Grand Junction, CO USA - Saturday, May 15, 2004 1:40 PM CDT Thinking of you guys this morning. Love, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> jacksonville, FL - Saturday, May 15, 2004 7:14 AM CDT Dear Laurie, Our deepest condolences. Suryan has touched so many lives and has left such a legacy. Our prayers go out to you and your family. Kellie, Brian and Ian Davideit (rhabdo-list) <kelbri27@optonline.net> Metuchen, NJ USA - Friday, May 14, 2004 10:12 PM CDT Laurie and Family, My heart aches for you. Please know that you will all be in our thoughts and prayers in the hard days to come. God Bless You. Melissa Blair (mom to Emily, age 4 ERMS Stage 4, o/t 1/31/03) www.caringbridge.com/mi/emilyblair <meilssalg@yahoo.com> Coldwater, MI 49036 - Friday, May 14, 2004 9:02 PM CDT Suryan, Unfortunately I never got the chance to meet you. But I am a great friend of Jenni's and, strangly enough, very close to the late Steven Dobarzynski. It is so amazing to me how we are intertwined even though we have never met. My heart is filled with emotions remembered from Steven's sickness. I know, all too well, what Jenni and the rest of your friends and family are going through right now. I make the promise to you that I will take care of her for you. On the same note, I know that Steven will take of you since we no longer can. Crystal Center <crystalmcenter@yahoo.com> Enterprise, Al USA - Friday, May 14, 2004 5:27 PM CDT Dear Laurie and Stephen, Please know that your family is in our constant thoughts and prayers. As I have said so many times before, we are better for having know someone as amazing as your Suryan, he will forever be a part of so many lives. Thank you for sharing him with all of us. You are a family that never stopped amazing us with your strength and courage. As I have said before, we are blessed to have gotten to know all of you. Hugs, Denice and Mike Diss-parents of Mikey age 5 dx 10/02 EARMS stage 3 -www.caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ 07417 - Friday, May 14, 2004 2:24 PM CDT Dear Laurie and Stephen, My heart is numb. I am so sorry. My condolences to you and your families. I am grateful to know that Suryan spent his last days doing some of the activities that he loved with friends and family rather than being confined to a hospital bed. And that he had the rare opportunity to see an endangered manatee. My Steven and your Suryan were just one year apart in age - maybe now they are sharing a friendship on the other side. Our Relay for Life is tonight and I will get a luminary for Suryan (I have one for my Mom and my son) and we'll send a contribution to the Rhabdomyosarcoma Research Grant. Please let us know if there is anything else we can do. with love, Ann (Steven's Mom) www.reddlegg.com/Leukemia_info.htm <ahart@troyst.edu> Troy, AL USA - Friday, May 14, 2004 1:45 PM CDT Dear Laurie, My heart goes out to you and your family. I e-mailed you before about my mom passing away in April. My mom also asked for "more information and detail about where she was going" in her last days...your courage and strength will guide you through the times ahead... God bless you and your family. Ricki Lasky <ricki.lasky@pinehurst.com> Pinehurst, NC - Friday, May 14, 2004 10:18 AM CDT Dear Laurie, I am so sorry to hear that Suryan passed away. But I am glad he managed to be surfing until only a short time before, as this will be the way I will always remember him. I have never met you or your wonderful son face to face, but you will always both have a special place in my heart. Your strength during this awful time has truly amazed me. Hugs to you and Stephen from Tommy and I. Love from Louise (Tommy's Mum) Nottingham, UK - Friday, May 14, 2004 7:28 AM CDT I just want you to know that i will be Praying for you and your family. Hugs and Prayers Melissa <Cart30@cox.net> USA - Friday, May 14, 2004 5:05 AM CDT I am so VERY sorry to hear about Suryan. I logged on expecting to read more about waves and the great time I was sure you'd be having. I'm so, so sorry. Suryan definitely knew how very much he was loved, and I know he loved you just as much. Maybe he'll meet up with my Ryan soon, (he was 17 when he died.) No matter what you do, or where you go, Suryan (and his sister) will ALWAYS be just a memory away. Love, Pat Manning <patricia.manning@comcast.net> antioch, ca usa - Thursday, May 13, 2004 10:49 PM CDT Laurie & Stephen: My heart breaks at this news. I pray that Suryan's spirit helps you to surf through your grieving. You are and forever in my prayers. Connie & Jeff - Rhabdo-list Connie Guy <conguy2801@aol.com> Twinsburg, OH USA - Thursday, May 13, 2004 4:37 PM CDT Laurie and Stephen, You are and will continue to be in my thoughts and prayers. Please please let me know if there is anything I can do. Cathy <cathyscndls4kids@aol.com> Bernie, MO - Thursday, May 13, 2004 3:50 PM CDT Dear Laurie and Stephen, I am so very sorry to hear of Suryan's passing. He has meant so much to us spritually and his passion for life will never be forgotten by my family. Thank you for sharing your precious son with us. He has taught us to enjoy life and I will always picture him on his surfboard or his mountain bike. You are in our hearts and prayers, Karen Priscella (mom to Mark - rhabdo survivor) and Michael <priscellak@aol.com> Wayland, MA USA - Thursday, May 13, 2004 11:03 AM CDT HANG 10, Suryan!! Hope you get the waves of your dreams. Better keep an eye on Mom & Dad so they don't lose anything else though! (Says she who spent 45 minutes this AM searching for MY car keys & found them in a grocery bag! :-) Pat <patricia.manning@comcast.net> antioch, ca usa - Wednesday, May 12, 2004 2:48 AM CDT Praying for the biggest waves ever. Also praying for memories that will sustain you for a lifetime. Suryan, you are AMAZING!!!!!! Carol mom to McKenzie, 19 months, Rhabdo Carol Fleming <scfleming27@hotmail.com> Moultrie, GA - Tuesday, May 11, 2004 5:53 PM CDT Glad you're having fun! Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> j, FL - Tuesday, May 11, 2004 8:17 AM CDT Hey guys, Sounds like you are having a really good time (good for you!!!). Even with the lost backpack and keys it still sounds like a wonderful trip. I don't blame you for ignoring those wbc's at this point. Just enjoy each and every second and take as many pictures as Suryan will allow :-). You are always in my thoughts and prayers. Call me when you get home. Love, Hugs and Prayers Cathy, mom to ^i^Sabrina^i^, my hero and the wind beneath my wings <cathyscndls4kids@aol.com> Bernie, MO - Tuesday, May 11, 2004 7:22 AM CDT Have fun surfing, Suryan. Thinking of you on this Mother's Day, Laurie. Love, Natalie & Lina Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> jacksonville, f - Sunday, May 9, 2004 12:11 AM CDT Way to go Suryan!!!!! You are my new hero!! I admire you more than you will ever know. Happy Mother's Day Laurie. I know this one may be bitter sweet for you (for many reasons) but treasure every second of it!!! Love you guys, Cathy, Proud Mom of ^i^ Sabrina^i^, Samantha and Travis <cathyscndls4kids@aol.com> Bernie, mo - Sunday, May 9, 2004 4:11 AM CDT sorry you missed the wedding, but have a good vacation and take care of yourself. jenni <jedmiston@troyst.edu> sgi, fl - Saturday, May 8, 2004 9:38 PM CDT Hi, Laurie and Suryan, Just checking in to say hello and that I'm thinking of you both. Hope you get to do some surfing in the next few days, Suryan. Robin Leach <rleach@admin.fsu.edu> Tallahassee, FL - Friday, May 7, 2004 11:38 AM CDT have a safe trip. jenni <jedmiston@troyst.edu> - Tuesday, May 4, 2004 8:34 PM CDT Just checking in to see how things are. I told ya you wouldn't get home till midnight Saturday! Doesn't matter though....be it ever so humble, there's no place like home (clicking my heels while I say that ;-). Hope Suryan is having a good day & week. You all are always in my thoughts and prayers! Hugs, Cathy, mom to ^i^Sabrina^i^, my hero and the wind beneath my wings! <cathyscndls4kids@aol.com> Bernie, MO - Tuesday, May 4, 2004 9:09 AM CDT Just checking in to see how things are. I told ya you wouldn't get home till midnight Saturday! Doesn't matter though....be it ever so humble, there's no place like home (clicking my heels while I say that ;-). Hope Suryan is having a good day & week. You all are always in my thoughts and prayers! Hugs, Cathy, mom to ^i^Sabrina^i^, my hero and the wind beneath my wings! <cathyscndls4kids@aol.com> Bernie, MO - Tuesday, May 4, 2004 9:09 AM CDT Sounds like you guys have been keeping pretty busy!! That's great! Have fun Suryan, but don't forget to take a breather every now & then.....mom's usually need them more than you guys do!! :-) Pat <patricia.manning@comcast.net> antioch, ca usa - Monday, May 3, 2004 9:47 PM CDT Just checking in on you guys. Take care. Natalie Martin-Rak <vladanat@comcast.net> Jacksonville, , fl vl - Monday, May 3, 2004 10:12 AM CDT Hey guys. Glad Suryan's feeling better and having fun with family and friends. Love, Deb and Alesia Deb Franklin <dolphindeb68@aol.com> Grand Junction, CO USA - Sunday, May 2, 2004 11:14 AM CDT Suryan - get better. Laurie - licorice is coming! Everyone, chin up. Lots of prayers to all of you. Love, Chris and Larry Chris and Larry Thomas <chrissythomas@earthlink.net> Port Charlotte, FL USA - Friday, April 30, 2004 3:55 PM CDT Glad to see you're having some good times. Thinking of you all lots! Natalie Martin-Rak <vladanat@comcast.net> Jacksonville,, FL - Thursday, April 29, 2004 9:53 AM CDT Hi Laurie, Things sound like they are fairly calm right now for you guys. I'm SO happy to hear there is NO PAIN!!! and NO NAUSEA!!! That is soooo great!!!! I'm also very happy to hear that Suryan still seems to be enjoying himself. I'm very proud of him (and his mom :-). Keep your chin up Laurie and know that you have friends that are holding you up in prayer. Hugs, Cathy, mom to ^i^Sabrina^i^, my hero and the wind beneath my wings <cathyscndls4kids@aol.com> Bernie, MO - Thursday, April 29, 2004 5:29 AM CDT A movie is a nice distraction after spending time in the hospital! Hope it was a good one. Glad you're not hurting Suryan.....enjoy your company, and get those counts going up!! Pat <patricia.manning@comcast .net> antioch, ca usa - Wednesday, April 28, 2004 10:22 PM CDT Finals start tomorrow, so I'm stalling my studying to see how everything's going. Guess I should get back to work though. :( Love you, Jenni <jedmiston@troyst.edu> Troy, Al - Wednesday, April 28, 2004 9:17 PM CDT Hi Suryan, Laurie, and Stephen, Just stopped by the website to see how you are doing. Glad that you are up and about. Hope the counts improve. Joan, mom to Ali, dx stage 3 ARMS 9/96 Lincoln, NE - Wednesday, April 28, 2004 7:38 PM CDT Thinking of you guys. Love, Natalie Martin-Rak <vladanat@comcast.net> Jacksonville, FL - Tuesday, April 27, 2004 11:48 AM CDT Just checking in to see how things are. I know you are prob. at the clinic today getting blood and platelets. Other than that I hope things are calm for you. Love, Hugs and Prayers, Cathy, mom to ^i^ Sabrina ^i^, my hero and the wind beneath my wings <mrsstan@aol.com> Bernie, MO - Monday, April 26, 2004 12:54 AM CDT glad to hear you're feeling better. love you, jenni <islandpunk@hotmail.com> - Sunday, April 25, 2004 1:56 PM CDT Good news from St. George Island -- I like to think of you all on the beach or in the waves. You're still teaching me that every day is a good day. God bless you! love, Rebecca Rebecca Burns <sgbinspect@aol.com> Cocoa Beach, fl brevard - Sunday, April 25, 2004 1:28 PM CDT Stopped by to 'visit'. Sending hugs and caring from Pittsburgh! Laura, Mike, and Reilly - Saturday, April 24, 2004 11:24 PM CDT Dear Laurie, Lovely picture's of a lovely family, thank you for helping us with good advice,you all give us the strength to carry on, did I mention how handsome suryan looks, thinking of you all. Love Debbie, Chloe's mum. Debbie Wright <debwright1@yahoo.com> Houston and Kent, USA & UK - Saturday, April 24, 2004 11:16 PM CDT Dear Suryan, Laurie, and Stephen, I hope you are enjoying visiting the alligators. I wish I could be there visiting them with you - make sure you say "HI" to them from me. You are all amazing people, and I'm sending love and a big (((((hug))))) your way. Joan, mom to Ali, dx stage 3 alveolar 9/96 Lincoln, NE - Saturday, April 24, 2004 2:49 PM CDT Dear Suryan, It was so nice to hear you are back on your bike at home and not in as much pain. I have been on the RH-KIDS board with your mother for a long time. The love you all share is truly amazing and so precious. You are all in our hearts and prayers... Karen, Mom to Mark (8) - rhabdo survivor and Michael (13) <priscellak@aol.com> Wayland, MA USA - Thursday, April 22, 2004 10:01 AM CDT Laurie, Suryan and Family, Suryan, you are truly an inspiration. Laurie, you have an amazing young man. I have followed your battle since I joined the Rhabdo list almost 3 years ago and am so heartbroken that it has come to this. I really struggle to find the right words. I don't have them. Just know that I care. Ellen Roth <1ellenroth@comcast.net> Grand Prairie, tx 75052 - Thursday, April 22, 2004 8:19 AM CDT Dear Laurie, I am so glad you are both back home and that Suryan's pain/nausea is under control. Thinking of you and Steven, and your wonderful, brave, and inspirational son. Love from, Louise Nottingham, UK - Wednesday, April 21, 2004 12:40 AM CDT Just wanted to let you know that you are in my thoughts and prayers this morning. Your strength and courage is AMAZING. I pray for peace and mercy for you and your family. Also praying for those waves to cooperate. Sincerely, Carol mom to McKenzie 18 months, ERMS Carol <scfleming27@hotmail.com> - Wednesday, April 21, 2004 8:48 AM CDT Thinking of you both Laurie & Suryan, and hoping that you're soon enjoying your company AWAY from the hospital!! Love from California Pat Manning <patricia.manning@comcast.net> antioch, ca usa - Tuesday, April 20, 2004 8:16 PM CDT Laurie, Stephen and Suryan We are sending hugs and kisses your way!!! We love you guys, you are in our prayers always. Suryan, you are one special person - you have shown so much strength and endurance in this rabdo battle. You are an inspiration to all of us. Glad you are home. Roe and Donna Rainey <raineyd@comcast.net> knox, TN - Tuesday, April 20, 2004 7:49 PM CDT Suryan, Laurie and Steven: Please know my thoughts and prayers are with you. Enjoy this time as much as possible. God bless you and keep you. You are all in my heart. Connie - mom to Jeff (20) stg 4- paratesicular ARMS; off treatment 11/03 www.caringbridge.org/oh/jeffreyscott Connie Guy <conguy2801@aol.com> Twinsburg, OH USA - Tuesday, April 20, 2004 10:40 AM CDT Hey Suryan, Keep the power man. You continue to have grace under fire. Have peace and love (in between the nausea and pain). My son's fighting the same beast. You are both great warriors. Justin's dad Tom Hilligoss <thilligoss@aol.com> Redwood City, CA USA - Tuesday, April 20, 2004 8:41 AM CDT Hi Suryan, Laurie, and Steven were're praying very hard that you do get to come home, and that your nausea and pain can be controlled. I know you'd like to get that surf board in the water to see just how many waves you can ride...Hope to see you soon...Let me know if you need anything, or want anything. Jim & Linda Jim & Linda Butler <lincj@gtcom.net> St. George Island, FL USA - Monday, April 19, 2004 8:06 PM CDT Hello to all of you, I hope that you are able to get out of the hospital and go home today. Know that so many are keeping you in their thoughts and prayers. Saturday night we had our 3rd annual "Step-For-Life Step Show" in memory of Steven. His fraternity brothers and sisters from the band raised $2,600 this year. The event gets bigger each year and the money raised goes to Cancer research. I encouraged everyone to become a blood donor or a platelet donor and told them some facts about how often people are diagnosed and how others can help. We are thinking of you all. Love, www.reddlegg.com/Leukemia_info.htm Ann <ahart@troyst.edu> Troy, AL USA - Monday, April 19, 2004 11:16 AM CDT Hi Laurie & Suryan, You both have been in my heart, thoughts, and prayers for several days now. I just want you to know that I'm here if you need me. Suryan you're a very special young man, and you've definitely given us all a lesson in courage, and strength. God Bless You & Your Mom Lots of Love Jim & Linda Jim & Linda Butler <lincj@gtcom.net> St. George Island, Fl Franklin - Sunday, April 18, 2004 7:41 AM CDT SA! I hope you are loving yourself. Everyone I have introduced to you has been changed for ever and we are all thinking of you. We love you man and i will be on the island soon to see you. Justin Haynie <haynimj@auburn.edu> Auburn, AL USA - Saturday, April 17, 2004 8:10 PM CDT Hi Laurie, Just checking in to see how things are going. You've been on my mind so much these past few days/weeks. You have my number if you need anything (anything at all!). Love and Hugs, Cathy <mrsstan@aol.com> Bernie, MO - Friday, April 16, 2004 4:59 AM CDT Hi Suryan, Hoping that it won't be long til you're out catching waves again!! Pat <patricia.manning@comcast.net> antioch, ca usa - Friday, April 16, 2004 1:28 AM CDT Laurie & Suryan - Just wanted you both to know how special I think you both are. Suryan you are truly a wonderful young man and Laurie you are a special mom and friend. I am so blessed to know you. So many people are praying for you both. Lots of Love!!! P.S. Panda, Mia, & Gina said they miss you, send kisses and licks and to come home soon. Celeste <less@gtcom.net> St. George Island, FL USA - Thursday, April 15, 2004 11:07 PM CDT Hi I'm one of Jenni's friends at Troy. All of us up here are praying for you and those close to you. Jackie B <jblondheim@troyst.edu> Gainesville, FL Alachua - Thursday, April 15, 2004 10:01 PM CDT i love you suryan. hope to come see you soon. jenni <jedmiston@troyst.edu> - Thursday, April 15, 2004 8:02 PM CDT Dear Suryan and Laurie, I hope there's relief soon from the pain and nausea. We'll pray for good info. from the tests, a good response to the next treatment, and then the wonderful summer you've planned... Love, Rebecca Rebecca Burns <sgbinspect@aol.com> Cocoa Beach, FL USA - Thursday, April 15, 2004 12:17 AM CDT Suryan and family My heart is breaking today. I just hate that you are suffering. I am praying fervently for God to cover you with his mercy. I hope you know how much you are admired. You are an amazing young man. God bless you always. Carol mom to McKenzie, 18 months, ERMS stage II Carol Fleming <scfleming27@hotmail.com> - Thursday, April 15, 2004 11:39 AM CDT Dear Laurie, I am hoping the doctors have found something to keep Suryan's pain under control. Please know we are all thinking of Suryan, and you and your husband at this such difficult time. Love from, Louise Nottingham, uk - Thursday, April 15, 2004 10:04 AM CDT Dear Suryan, Steven, and Laurie, Please know that Jim, and I have been praying since the begining, and will continue to keep you all in our hearts, and prayers. Let us know if there is anything that we can do for you. God Bless we love you Jim & Linda Butler <lincj@gtcom.net> St. George Island, Fl Franklin - Wednesday, April 14, 2004 7:01 PM CDT Thinking about you everyday, hope the pain eases soon. Love you jenni <jedmiston@troyst.edu> troy, al - Wednesday, April 14, 2004 11:40 AM CDT Hi, Laurie and Suryan, Have been thinking a lot about you all and so sorry you're having so much pain, Suryan. I'm sending you all my best wishes. Robin Leach <rleach@admin.fsu.edu> Tallahassee, FL USA - Wednesday, April 14, 2004 11:06 AM CDT You guys are all in my thoughts and prayers. Love, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> jacksonville, fl - Tuesday, April 13, 2004 9:11 PM CDT Suryan, We hate to think of you in pain. I hope you get some relief very soon and some answers. You're in our hearts and prayers always. Sending big hugs to you and your Mom from Boston, Karen Priscella, mom to rhabdo survivor Mark and Michael <priscellak@aol.com> Wayland, MA USA - Tuesday, April 13, 2004 2:51 PM CDT Sending hope & positive thoughts from California Suryan!! Hugs, Pat pat <patricia.manning@comcast.net> antioch, ca usa - Tuesday, April 13, 2004 1:45 PM CDT Hi Suryan, I'm continuing to pray for pain relief. Hope your Easter was eggstra special! Stephanie and RachelJoy <sstrom@quik.com> - Monday, April 12, 2004 7:06 PM CDT Hey Suryan, Just wanted to let you know that we are thinking about you and praying for you, especially for some relief of that pain. You are an amazing young man and I just hate to hear that you are in so much pain. It just makes me soooo mad at this disease!! Anyway, Happy Easter and our Best wishes. Sincerely, Carol mom to McKenzie, 18 months, Rhabdomyosarcoma www.caringbridge.org/ga/mckenzief Carol Fleming <scfleming27@hotmail.com> - Saturday, April 10, 2004 11:41 AM CDT Hello, We are thinking of you this Easter weekend and hoping you are getting some relief from the pain. http://stepforlife.cjb.net/ Ann and John Lester (Steven's Mom & Dad) <ahart@troyst.edu> Troy, AL USA - Friday, April 9, 2004 1:07 PM CDT Hey all! I haven't been by since Maxie's journey to be with the Lord. His Rhabdo turned to stage four and he couldn't hang on. He fought a good fight. He passed 3-27, saddest day in my life. Suryan kick some rhabdo butt! Maxie has your back! Take care all of you. www.caringbridge.org/va/maxie/ Christy (maxie's mom) <maxiewithlove@aol.com> Amelia, VA - Wednesday, April 7, 2004 0:18 AM CDT Hi Laurie and Suryan, WE think about you every day! Love you lots! Sue and Chuck Sue and Chuck Shadel <cshadel @yahoo.com> Millersburg, PA USA - Tuesday, April 6, 2004 6:36 PM CDT Happy Birthday Suryan! I'm sure you're happy to be home for awhile. I just want to let you know you are in our thoughts and prayers. My sons both play guitar and remember you from your wish and always ask about the "guitar guy". My younger son is a survivor of rhabdo. Enjoy the sunshine and know we are all praying for the day you will be surfing again!! Hugs to you and your Mom, Karen Priscella (RH-KIDS) mom of survivor Mark (8) <priscellak@aol.com> Wayland, MA USA - Saturday, April 3, 2004 7:15 AM CST HAPPY 21st BIRTHDAY SURYAN! Bet you're glad to get back home today! We went to St. George Island for a few days of vacation last week and it was so beautiful and relaxing there. I didn't want to leave. Our Westie, Ozzy, loved it too! It was great to meet your Mom, Panda, and Maya! You're fortunate to have such a wonderful person as your Mom there for you through any obstacle. Everyone should have such a great patient advocate. Ann and John Lester www.reddlegg.com/Leukemia_info.htm <ahart@troyst.edu> Troy, AL U.S.A. - Tuesday, March 30, 2004 6:54 AM CST Hi Suryan, My name is Jenna and I came across your page through another Caringbridge site. I just turned 23 on the 23 of March and I was born with a rare bone disease and I suffer in chronic pain 24/7. You are an inspiration in life and I can tell that you have a positive outlook towwards life, which through my struggle I have learned that it is important. your in my prayers. http://www.caringbridge.org/canada/jenna Jenna <hockeykid@telus.net> Kamloops, BC Canada - Thursday, March 25, 2004 10:22 PM CST Oh WOW 21!! HAPPY EARLY BIRTHDAY!!!! Glad to hear things are going well. Hugs and Prayers Melissa <Cart30@cox.net> Cantonment, FL USA - Thursday, March 25, 2004 7:47 PM CST Hi Suryan, I'm sorry, I meant to say Happy 21st Birthday coming up on March 30th! Not the 31st. Best wishes to you. Ann <ahart@troyst.edu> Troy, AL U.S.A. - Tuesday, March 23, 2004 9:36 AM CST Hi Laurie and Suryan, Happy upcoming 21st birthday on March 31st Suryan! You are an inspiration to many and everyone is rooting for you. Do you live on St. George Island? My husband and I are visiting the island later this week and would love to meet you if possible. My only child, Steven, had leukemia and we lost him 2 years ago March 25th. He was a student at Troy State University and would be 22 now. We created a website for Steven when he was diagnosed in 2001 and updated it for friends and family. www.reddlegg.com/Leukemia_info.htm Ann <ahart@troyst.edu> Troy, AL U.S.A. - Monday, March 22, 2004 10:25 AM CST Hi Laurie, I would say hello Suryan, but does he ever look at his page? :-) I am thinking of you everyday. Hope you can feel some of that positive energy. email me your cell phone#; I've lost it. I hope you were able to relax a bit and enjoy Panda this weekend. Love, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> Jacksonville, fl - Saturday, March 20, 2004 8:40 PM CST Hi Suryan, I bet you're glad the surgery is over. Hang in there - know there are so many people praying for your recovery. You have such a strong spirit! I hope your surfing very soon... Many hugs for you and your Mom, Karen Priscella (RH-KIDS) mom to rhabdo survivor <priscellak@aol.com> Wayland, MA USA - Saturday, March 20, 2004 3:02 PM CST Hi guys. Can't believe all that's happened recently. Hope Suryan is in good spirits. All of you keep plugging along and my thoughts and prayers are with you every day. Love, Deb Deb Franklin <dolphindeb68@aol.com> Grand Junction, CO USA - Wednesday, March 17, 2004 12:04 AM CST I am glad to hear the surgery went well & that the pain is under control. I hope this is a sign that continued good news is on its way for you and Suryan. You two are always in my thoughts. Karin http://www.caringbridge.com/canada/karin Vancouver, BC, Canada - Tuesday, March 16, 2004 1:57 PM CST hope the surgery went well. i'll be home in two weeks for a couple days, hope to see you. take care Jenni <jedmiston@troyst.edu> Troy, AL - Monday, March 15, 2004 10:34 AM CST Hi Laurie, Hope all goes well with the operation tomorrow. I'll be thinking of you and Suryan and hoping that he will soon be back surfing. Also, I am really sorry to hear about Panda. Love from, Louise Nottingham, Uk - Sunday, March 14, 2004 3:55 PM CST Hi Suryan and Laurie: Stopped in wanting to see your photos again. I take a lot of personal inspiration from your grit, Suryan. Look out for each other as you work your way through these rough days. Robb Kidd <rnk@kingston.net> Kingston, On Canada - Thursday, March 11, 2004 8:29 PM CST I think of you often and pray everything will turn out well.Keep smiling. Debbie-mommy to Anthony - dx 5/01 off tx. 4/02- embry. rhabdo to the neck and ear. Debbie Borsellino <debbie.deb3@verizon.net> Stony Point, NY USA - Thursday, March 11, 2004 3:08 PM CST MD anderson is such an awesome place.I pray that they will be able to offer something wonderful.Im thinking of you guys and praying for ya'll. Hugs and Prayers Melissa <Cart30@cox.net> Canotment, Fl USA - Wednesday, March 10, 2004 4:56 AM CST Just stopping by to say that I'm praying for your family during this challenging time. Lisa Seattle, WA - Sunday, March 7, 2004 1:03 AM CST Laurie, I'll be praying for Suryan. Have been following your updates on the list and appriciate your attention to conveying the details. I am with you in hoping for a breakthrough the will help Suryan. You've been going at it for two years and four months. Bob Lee, Dad to Joseph, age 15. dx ARMS 10-18-01 to left forearm and mets to armpit. 42 week VAC plus surgery and radiation. Off treatment 08-23-2002. Clear scans 02-04-04 www.caringbridge.org/ga/josephlee <artlee@integrity.com> Kennesaw, GA USA - Thursday, March 4, 2004 11:28 PM CST Suryan, Laurie and all the family, Just wanted to let you know that we are thinking of you and that you are in our prayers. Karen & Donal, Parents to Ciara 4, Rhabdo List <flemard@bellsouth.net> Atlanta, GA USA - Thursday, March 4, 2004 5:39 PM CST Thinking of you all and praying for some good news to come your way. Love, Deb Deb Franklin <dolphindeb68@aol.com> Grand Junction, CO USA - Wednesday, March 3, 2004 9:53 AM CST I just want you guys to know that im thinking of you and praying for all of you. Hugs and Prayers Melissa <Cart30@cox.net> Cantonment, Fl USA - Monday, March 1, 2004 4:12 PM CST Thinking of you guys. Sounds like good news about the hip! Always sending healing thoughts, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> Jacksonville, fl - Friday, February 20, 2004 12:10 AM CST I just wanted to stop by and say hello and let yall know that we are praying for the radiation to go well.Im sorry to hear about Panda. Hugs and Prayers Melissa <cart30@cox.net> Cantonment, Fl USA - Monday, February 16, 2004 11:54 AM CST Dear Laurie and Suryan, Please know that extra thoughts and prayers are with you from New Jersey that you finish radiation and feel better in no time. I check in so often to see how you are doing, you are truly an amazing young man with a wonderful Mom. Hugs, Denice-mother of Michael age 5 dx 10/02 EARMS stage 3 parameningeal-www.caringbridge.org/njmikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ - Sunday, February 15, 2004 12:17 AM CST Hello Ill be praying for u during radiation times.............Its great to hear about you biking there when you feel ok to do so...........keep that strong spirit!!!!! My sons hospital provided free massages to radiation patients (my son was too young though----they gave mom and dad a destressing massage though) inquire and see if the place you are going to provides that--- Ill be checking in on u my prayers are with you cheryl http://www.caringbridge.com/ct/lilshane/ cheryl <frenchvanilla10@earthlink.net> ct - Thursday, February 12, 2004 8:48 PM CST Hi Laurie, Glad to hear Suryan has been out surfing, although it sounds a bit cold! Good luck with the radiation. Love from, Louise Nottingham, UK - Thursday, February 12, 2004 5:42 AM CST Sending good wishes your way. I hope you breeze right thru the radiation. I am on the rhabdo kids list and have been following your moms updates. You have people you have never even seen pulling for you to do well I think thats very cool. Take care Michele ( mommy to Cameron 5yrs rhabdo dx 1999 off treatment 9/00) <mrohelier2@sbcglobal.net> warren, mi usa - Friday, February 6, 2004 6:26 PM CST Will be thinking of you during the radiation treatments.... and praying. Hope you find a good place to stay. Gail Record <GRecord@juno.com> - Wednesday, February 4, 2004 9:05 PM CST Just thinking about you guys and checking in. Will hope for some resolution to your housing situation. My control freak side is all put out by that! Enjoy that bike! Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@comcast.net> Jacksonville, fl - Tuesday, February 3, 2004 6:27 AM CST Hi Laurie & Suryan, even though I'm off the rhabdo list for now I can't help but check up on you. I check the site often and think about you a lot. Just wanted you to know that I'm thinking of you as you battle on. Karin http://www.caringbridge.com/canada/karin Vancouver, BC, Canada - Sunday, February 1, 2004 2:58 AM CST Sorry Suryan has to quit school again...I know how much he hates that. I'd love to be able to drive to Gainsville while you're there and see you sometime...keep me posted on dates you'll be there. Jenni <islandpunk@hotmail.com> Troy, AL - Friday, January 30, 2004 2:01 PM CST Greetings from rainy, rainy Oregon. I'm sorry that you have to quit school again to pursue further TX. I'll be praying that this rids you of the cancer monster once, and for all. Stephanie and RachelJoy <sstrom@quik.com> - Wednesday, January 28, 2004 5:41 PM CST Hi Laurie, I am sorry you had such a lot of hassle at the hospital, and I hope you get those results as soon as possible. I also hope Suryan's bike turns up soon! Love from, Louise Nottingham, uk - Sunday, January 25, 2004 2:04 PM CST Hi Laurie,Dad And Suryan, Pictures from Hawaii look wonderful. We are praying that your cure is just ahead of you and that you have been picked to be the pioneer for it.Your spirit is awesome and your strength and courage outstanding, keep the faith. Life is fragile handle with prayer. www.caringbridge.org/il/peterpartaker, visit us! Peter's mom Sue <pray4peace13@aol.com> Chicago, Il. USA - Friday, January 23, 2004 8:02 AM CST Hi Suryan and family, I will be praying the biopsy will be favorable for you. I would like to invite you to visit Smile Quilts http://smilequilts.com and see if we can make a virtual on line Smile Quilt just for you with your favorite things on the quilt. If you would like a Smile Quilt, just fill out the request form and we would be happy to send some smiles and hugs your way. Sending you lots of hugs and I will be keeping you in my prayers. Hugs, Angel Sprite  Smile Quilts Angel Sprite <smilequilts@smilequilts.com> Eckert, Colorado USA - Friday, January 23, 2004 4:56 AM CST I was just thinking of yall and thought id stop by and say hello.We will be praying about the bone biopsy. Hugs and Prayers Melissa <cart30@cox.net> Cantonment, FL USA - Thursday, January 22, 2004 1:26 PM CST Hey everyone! A biopsy, it will turn out great! You all have always such a great outlook! Ride a wave for me suryan! Take Care! www.caringbridge.org/va/maxie/ Christy <maxiewithlove@aol.com> Amelia, Va - Thursday, January 15, 2004 3:32 PM CST Hey, It's Deb. Hope you all are keeping your wits about you. So bummed to hear about school, Suryan. Call if you feel like talking on Thursday. I'll catch you this weekend if not. Love you guys! Deb Deb Franklin <dolphindeb68@aol.com> Grand Junction, CO 81504 - Wednesday, January 14, 2004 11:08 PM CST I am so sorry Suryan has to quit school.I am Praying for You Him and your entire family. Hugs and Prayers Melissa <cart30@cox.net> Cantonment, FL USA - Tuesday, January 13, 2004 7:52 PM CST Hi Laurie, I was really hoping Suryan could go to school again too, knowing that is what he really wanted to do. It is just not fair. Keep the faith....... Love, Gail Gail Record Cedaredge, - Tuesday, January 13, 2004 9:59 AM CST Hi Laurie, I am so so sorry about the bad news. I feel so bad for you and for Suryan. It's so unfair that children and young adults suffer with cancer. I hope you get some idea of what further treatment Suryan can have as soon as possible. Keep going for the cure! Love from Louise Nottingham, UK - Tuesday, January 13, 2004 4:20 AM CST Hi, My name is Ricki - I just wanted to tell you to hang in there -don't ever give up - my mom (67)has rhabdo stage 4 and continues to fight the beast everyday - she inspires me so! My thoughts and prayers are with you and your family. Ricki Lasky <ricki.lasky@pinehurst.com> Pinehurst, NC - Monday, January 12, 2004 3:28 PM CST I just wanted to say I love you guys and I hope everything is better soon. Jenni <islandpunk@hotmail.com> - Monday, January 12, 2004 2:01 PM CST Hey all, It's Deb. Thought I'd check the sight for news. Hope you heard all good stuff today. Will e-mail you. Loves you guys! Deb Franklin- <dolphindeb68@aol.com> Grand Jctn, CO USA - Saturday, January 10, 2004 0:31 AM CST Hi Laurie, Good luck for the scan today. I am thinking of you and Suryan and hoping that you will be getting some good news that the tumours are all dead. Love from, Louise. Nottingham, UK - Thursday, January 8, 2004 3:24 AM CST I hope that the appointment went well and know you know what is going to happen now.I love the family photo on the picture page.Looks like yall had an awsome time. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie <cart30@cox.net> Cantonment, Fl USA - Wednesday, January 7, 2004 0:06 AM CST Hi Suryan: My son Jeff is your age and had to take a year off school. He's returning to the Univ. of Toledo next week. He's also excited to get on with his life and back to his friends at school. I'm sorry you have to be in limbo. Sometimes I wish this terrible thing would just understand that there's too much living to do. You are an inspiration to Jeff and I. You seem to be putting the beast in it's place. We wish you the best and hope you can also return to school Connie Guy <conguy2801@aol.com> Twinsburg, OH USA - Tuesday, January 6, 2004 5:13 PM CST Hi Laurie, I hope you get some answers regarding the radiation today. It must be so horrible being stuck in limbo like this. I will check back soon to see how things are progressing. Love from Louise Nottingham, UK - Monday, January 5, 2004 4:24 AM CST Dear Suryan, I am in awe of your true grit! To manage college and chemo at the same time is amazing to me. You have been through so much. I'm glad you got to chill out, or was it warm up (?!) in Hawaii, May 2004 be the year of your healing, and many great adventures. Stephanie and RachelJoy <sstrom@quik.com> - Thursday, January 1, 2004 10:35 PM CST Dear Laurie, I am so glad that all of you enjoyed your vacation. I will say extra prayers that all of his tests and scans have good results. Please let me know when you have a chance. Have a wonderful Christmas!!! You are always in my thoughts. Hugs, Denice-Mother of Michael age 5 dx 10/02 EARMS stage 3 parameningeal-surgery 10/31/02= 42 weeks VAC protocol and 28 days radiation=completed tx 8/20 clear scans as of 12/04/03-always praying - www.caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ - Tuesday, December 23, 2003 7:55 PM CST Hi Laurie, I hope you had a wonderful holiday! Good luck for the scan results. I will be thinking of you and Suryan and hoping to hear some good news. Love from, Louise Nottingham, UK - Monday, December 22, 2003 3:38 PM CST Dear Laurie, Suryan and Stephen, So glad the trip worked out and hoping you are having a fantastic time! Thinking about you all of you. Love, Gail Gail Record <grecord@juno.com> Cedaredge, CO United States - Sunday, December 21, 2003 5:40 PM CST Maxie ticket to go with you didn't get here yet? Smile... Hope you have a great time! Take care and happy holidays! www.caringbridge.org/va/maxie/ Christy <IMAQT430@aol.com> Amelia, VA - Monday, December 15, 2003 9:46 PM CST I hope yall are having an awesome time!!! Hugs and Prayers Melissa <cart30@cox.net> Cantonment, Fl USA - Monday, December 15, 2003 10:57 AM CST Hi Laurie, I am so pleased to see that you are off to Hawaii! I am sure you will all have a fantastic time! Love from, Louise Nottingham, UK - Thursday, December 11, 2003 3:17 AM CST Laurie, I am so happy to hear that Suryan has finished treatment and will be able to enjoy your wonderful trip to Hawaii. As always, you will all be in our prayers... Hang 10 for us!! Going for the cure with you!! Karen Priscella (RH-KIDS) mom to Mark (8) survivor <priscellak@aol.com> Wayland, MA USA - Wednesday, December 3, 2003 10:19 PM CST I am so happy for Suryan...I am so glad he is doing well, and is beating this horrid disease. Joe who is now 22 still goes to Arkansas Children Hospital. They say they will keep treating him as long as he needs it. so I was surprised that your children hospital is sending you all elsewhere. My cousin works in MD Anderson and Houston Hospital. He is a doctor..and is really good. Have a great time on your vacation.. you all deserve it. May God continuely bless you all. Kathy Hummingbird mom to Joe <khbird@hotmail.com> Gentry, Ar usa - Monday, December 1, 2003 7:19 PM CST CONGRADULATIONS!!!! Have lots of fun in Hawaii!! Melissa <cart30@cox.net> Cantonment, FL USA - Monday, December 1, 2003 2:38 PM CST Just wanted to say congratulations on the end of chemo! Hope you're doing good! :) Jenni Edmiston <jedmiston@troyst.edu> - Monday, December 1, 2003 10:23 AM CST Hiya Suryan and Mom, Hurray for today's discharge and end of chemo! Suryan you have always been a pleasure to take care of. I hope you all have a wonderful trip to Hawaii and the weather stays beautiful. I'll be thinking of you. Keep in touch! Nurse Ingrid <rningo@bellsouth.net> Jacksonville, FL USA - Monday, December 1, 2003 7:29 AM CST Dear Laurie, I wanted to see how Suryan did with his final chemo. I hope that he is up and around in no time getting ready for Hawaii. Please know that Suryan and your family are always on my mind and in my prayers. Hugs, Denice-friend from the rhabdo list-Mother of Micahel age 5 dx 10/02 EARMS stage 3 -surgery 10/31/02-completed 42 weeks VAC and 28 days radiation-finished tx 8/20/03-with clear scans as of 9/11/03 and still praying www.caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ - Sunday, November 30, 2003 10:54 AM CST I just wanted to stop by and say Hello. Hugs and Prayers Melissa <cart30@cox.net> Cantonment, FL USA - Friday, November 28, 2003 10:06 PM CST Jeff came home this weekend and wanted to see you, said he was going to try to get in touch with you soon. Hope you get to feeling better; I'll see you when you get back from Hawaii!! Have fun. Much love, Jenni Edmiston <jedmiston@troyst.edu> - Friday, November 28, 2003 9:24 PM CST I am so happy for yall,I hope this one goes better than some of the others.I hope that yall have a Great Thanksgiving.And a Wonderful Trip. Hugs and Prayers Melissa <cart30@cox.net> Cantonment, FL USA - Wednesday, November 26, 2003 10:05 AM CST Hi Laurie, I'm so glad to read that Suryan is starting the last chemo' tomorrow. And the holiday sounds brilliant! Wish I could come too! Love from Louise Nottingham, UK - Wednesday, November 26, 2003 8:36 AM CST Hi, just wanted to wish you a WONDERFUL trip.. no wait, make that an exceptionally super once-in-a-lifetime kind of trip! Have fun surfing the isles of paradise :) I'm sure I don't have to tell you to enjoy.. I am confident you will :) Good luck on the last chemo and big congratulations on making it through the treatment course. Karin http://www.caringbridge.com/canada/karin Vancouver, BC, Canada - Wednesday, November 26, 2003 1:39 AM CST Hi Suryan and Laurie, Yeah, Yeah, Yeah!!!! I'm sure you are so "thankful" that you are on your last treatment! I know the feeling because my little McKenzies' last treatment is on Dec. 19th! I hope that you have a wonderful time in Hawaii, no one deserves more than you! You are an inspiration and a true hero in my book!!! Maybe one of these days we could meet you guys. We are always in Tallahassee. We live in Moultrie, GA which is about 1 hr north! Best wishes always. Remembering you in prayer, Carol mom to McKenzie, 1 yr, Rhabdomyosarcoma www.caringbridge.org/ga/mckenzief Carol Fleming <scfleming27@hotmail.com> Moultrie, GA - Tuesday, November 25, 2003 8:51 AM CST Laurie & Suryan~ Hey, glad to hear Chemo is almost over. Miss you guy's bunches, can't wait to see you again. Love you, Alesia Alesia <USAFkicks@aol.com> Grand Junction, CO U.S.A. - Monday, November 24, 2003 2:23 PM CST HI Laurie, Suryan, and Stephen. Finally got around to checking this web sight, how cool! Hawaii? Wish I was there! All the best in Jax this trip for the last chemo. Love you guys. Call you on Thanksgiving. Deb Deb Franklin <Dolphindeb68@aol.com> Grand Junction, CO USA - Monday, November 24, 2003 0:07 AM CST Dear Laurie and Suryan, Yeah!!!!!!Last Chemo!!!!!! I hope that you guys have a wonderful trip to Hawaii and that Suryan enjoys the surfing. Please know that you and Suryan are always in our thoughts and prayers and we check in all the time. Please let us know how Suryan does with his final chemo. Hugs, Denice-Friend from the Rhabdo list-Mother of Michael age 5 EARMS stage 3 paramingel-www.caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ - Sunday, November 23, 2003 9:15 PM CST Hi, I've been watching you site for a while and it's good to see how well you are doing. My 9 year old son has orbital rhabdo and he is doing great too! My friend lives in Tallahassee and she was wondering where you go to surf? Kim Lawson <www2b@earthlink.net> Dover, Fl USA - Wednesday, November 19, 2003 6:41 PM CST Suryan and Laurie, We are glad to hear of Suryan's progress. We keep you in our thoughts and prayers always. Diane and Harold Medill <hardeerye@ghvalley.net> Rye, CO USA - Tuesday, November 18, 2003 1:48 PM CST I just wanted to stop by and see how things were going.Im so glad he is almost done with chemo! Hugs and Prayers Melissa www.caringbridge.org/fl/jackie <cart30@cox.net> Cantonment, FL USA - Saturday, November 15, 2003 10:32 AM CST Just a quickie...Jim told me you guys went to the Yeah Yeah Yeahs concert...hope you had fun, and the matrix was good. Luv ya, keep going! Jenni <islandpunk@hotmail.com> SGI, FL - Friday, November 14, 2003 2:17 PM CST Hi Laurie and Suryan, Wow, only one more chemo! Keep up the good work. I want to come visit you and see the wetlands with all the alligators. How does February sound? That's when I'm REALLY sick of Nebraska winters! Joan, mom to Ali (diagnosed with alveolar rhabdomyosarcoma 9/96) Lincoln, NE - Thursday, November 13, 2003 8:44 PM CST Wow what a tough round glad that one is over and only one more. I will be checking in, hang in there. I agree there is no place like home. www.caringbridge.org/va/maxie/ Christy <IMAQT430@aol.com> Amelia, VA USA - Wednesday, November 12, 2003 0:11 AM CST Hope Suryan gets to feeling better; keep your heads up. I'll probably give you a call sometime within the week just to chat. Much love, Jenni Edmiston <islandpunk@hotmail.com> SGI, FL - Monday, November 10, 2003 3:25 PM CST Hi Laurie and Suryan, I'm pleased to see the chemo went ahead on Friday. Only 1 more round to get through after this! Love from, Louise and Tommy Nottingham, UK - Sunday, November 9, 2003 11:50 AM CST Hi Laurie, I hope Suryan's counts are higher tomorrow so he can get his chemo' started on Friday. I know how frustrating it is to be delayed. Love from, Louise and Tommy Nottingham, UK - Wednesday, November 5, 2003 2:33 PM CST I hope that his counts come up soon.Isnt this the last one or was it one more after this one?Suryan you keep on having fun!! Hugs and prayers Melissa <Cart30@cox.net> Cantonment, FL USA - Wednesday, November 5, 2003 7:26 AM CST I'm SO happy to hear that Suryan is having fun. You GO Suryan!!! And you go MOM for helping to make it happen. I know first hand how much joy you get out of watching him go out and do "normal" things. Good luck with chemo this week. ONLY ONE MORE!!! YIPPEE!!!! Love, Hugs and Prayers, Cathy, mom to ^i^ Sabrina ^i^ <mrsstan@aol.com> - Tuesday, November 4, 2003 4:47 AM CST It was really good to hang out with you this weekend Suryan! I got a couple of weird looks introducing you as my brother, but oh well. :) I miss you guys already! Feel better... Jenni <jedmiston@troyst.edu> SGI, - Monday, November 3, 2003 10:13 AM CST Hi Suryan, What an awesome surf board! I was never able to do that, but I did get to boogy board in San Diego, CA when I was a kid. I thought that was cool! Wishing you all the best from here in Illinois, Mary Mary <Hack1sjo@aol.com> St. Joseph, IL USA - Sunday, November 2, 2003 2:38 PM CST Hi Laurie and Suryan, Thought I'd visit here to check out Suryan with his new surf board. Hope you're having a good day. Laura (Reilly's mom - RH-kids) - Sunday, November 2, 2003 9:27 AM CST Wow, sounds like things are well. I want to be skinny and young so I can surf. I hope your weekend was great! www.caringbridge.org/va/maxie/ Christy <IMAQT430@aol.com> Amelia, VA USA - Sunday, November 2, 2003 0:22 AM CST Dear Laurie and Suryan, My name is Denice and I am a friend from the Rhabdo list. I check in to see how Suryan is doing all the time. My five year old son Michael has Embryonal&Alveolar Rhabdo stage 3. Michael thinks Suryan and his surf board are the coolest. Florida is also our favorite vacation spot. We just got back from Marco Island when Michael finished treatment. He thinks that you are so lucky to live there. Please know that you are in our thoughts and prayers and you have so many people that feel the same. We will keep checking on you! Hugs, Denice and Michael Diss-www.caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ 07417 - Friday, October 31, 2003 6:56 PM CST Laurie and Suryan, Glad to hear Suryan got to try his new surfboard out :-) Won't be around much in the next couple of weeks due to Tommy's surgery, but I'll still be thinking of you, and hoping you get to Jacksonville on the 5th Nov as planned. Take care, Love from Louise and Tommy Nottingham, UK - Tuesday, October 28, 2003 8:05 AM CST Hi, I am new to your page. I hope you don't mind if I check in on you. Please know we will add you to our ever growing prayer list. Many hugs are sent your way, Lynn <candlys@aol.com> www.caringbridge.com/pa/jessiespage, PA - Monday, October 27, 2003 10:05 PM CST Hi just checking on how things are going with all of you. Maxie had a problem this round too which was his 9th. His pressure was sky high! Take care and we will be checking on you. www.caringbridge.org/va/maxie/ Christy <IMAQT430@aol.com> Amelia, VA - Friday, October 24, 2003 11:34 PM CDT Me Again...I'm coming to the island this and next weekend, hope to see you then. Take care, I love you guys! Jenni Edmiston <islandpunk@hotmail.com> SGI, - Sunday, October 19, 2003 1:54 PM CDT  Suryan, Prayers are with you. Hope you are feeling stronger. Please, know that you are loved. Blessings to you and your family, Debi RAOK Debi Blacklidge <amhardy1@cox.net> Rancho Santa Margarita, CA United States - Friday, October 10, 2003 6:24 PM CDT Just wanted to stop by and say hello :) I hope you are feeling better. Carolyn and Fisher www.caringbridge.org/va/fisherc <oshelrina@aol.com> Chesapeake, Va USA - Thursday, October 9, 2003 3:54 PM CDT I just wanted to come by and see how things were going.Ill be praying things go well with chemo and everything so he can get that test done.Its good to hear that there are working with him and letting him reschedule.I cant wait to hear about radiation so i know it is driving you guys crazy. Hugs and Prayers Melissa <cart30@cox.net> Cantonment, FL USA - Tuesday, October 7, 2003 7:00 AM CDT Prayers are with you all. I pray Suryan will be in good health again soon. Blessings to all. Kevin Z. - Monday, October 6, 2003 3:03 PM CDT Hi Laurie and Suryan, Go Suryan! I can't believe how much energy you have after chemo. Live each day to the fullest. I hope the radiation works out. Have you looked into Memorial Sloan in NYC. I've been there for consultations before. I always keep you in my thoughts and prayers. With love, Dana <dpjersey@aol.co,> Metuchen, NJ - Friday, October 3, 2003 5:07 PM CDT Dear Laurie, I'm sorry to hear Suryan had problems with his blood pressure. We had the same thing happen when Tommy first had etoposide, but luckily it's not happened since (Tommy has etoposide every 3rd lot of chemo'). I hope it will be a one-off for Suryan too. I've never seen a picture of Suryan until today, so I didn't know how gorgeous he is! Love from, Louise Lloyd (Tommy's Mum from the rhabdo' list) Nottingham, UK - Wednesday, October 1, 2003 2:30 PM CDT Dear Laurie, I am sorry to hear that Suryan had a hard time. I want you to know that Suryan and your family are always in our thoughts. He is an amazing young man and he never stops amazing us. We check in often to see how he is doing and where you are with his treatment. Please know that you have such a such a support system behind you. Hugs, Denice-friend from the Rhabdo list-Mom of Michael age 5 stage 3 EARMS-www.caringbridge.org/nj/mikeydiss Denice Diss <dndiss@hotmail.com> Franklin Lakes, NJ 07417 - Wednesday, October 1, 2003 11:21 AM CDT Hi Lauries/Suryan, Sorry to read about the troubles (i can only imagine) but as is always the case with Suryan and his family, I continue to be impressed by your strength and determination. I think of you guys all the time and have tried my best to keep up with the news you post, and most of all, CAN'T WAIT for the good news!!! Suryan must be such and inspiration to soooo many, very impressive sir! Take good care- Brian, Nick's dad. Brian Gantner <BrianG@gandgindustries.com> Birmingham, mi USA - Wednesday, October 1, 2003 10:49 AM CDT Hi Laurie & Suryan - Just read your update and want you to know I'll be thinking about Suryan and hope that the countdown to the end of chemo. will go smoothly. You're in my prayers and I know that once you get that radiation set up, you'll be into yet another routine. Thinking of you every day, Amy, mom to Paxton, in Portage, MI, from the Rhabdo. list Amy Green <greena@schoolcraftschools.org> Portage, MI USA - Wednesday, October 1, 2003 9:44 AM CDT Hi Suryan and Laurie, I'm sorry to hear about the reaction to the Etoposide. That must have been so scary. I recently had a reaction to a chemo as well and I was very scared but more scared that I wouldn't be able to take the chemo. Luckily they doped me up on pre meds and gave it to me slower. The things we have to do? Rest up Suryan and keep strong. From one beast slayer to another. Lots of love Dana <dpjersey@aol.com> Metuchen, NJ - Monday, September 29, 2003 8:29 PM CDT I just wanted to come by and let you guys know we are thinking of you. Hugsa and Prayers Melissa www.caringbridge.org/fl/jackie <cart30@cox.net> Cantonment, FL USA - Friday, September 26, 2003 9:28 AM CDT Hi Suryan, I know you through your Mom's posts to Rhabdo-Kids. My 15 year-old has been in the stage 4 ARMS battle for 2.5 years. He's trying to do school and fight the fight too. What a pain. Justin has relapsed twice in the same spot in the brain. We're looking for a different chemo brew right now. I pray for your healing. Keep up the fight. Justin's site is 'justin-info.com'. Tom Hilligoss <thilligoss@aol.com> Redwood City, CA USA - Sunday, September 21, 2003 8:34 AM CDT Thinking and praying for all of you. Glad the treatments are going well and hope you hear from those doctors soon! Keep that positive attitude Laurie! Gail Record - Saturday, September 20, 2003 9:19 PM CDT I just wante dto stop by and say hello.Im glad your counts are up and ypu are able to go to see your friends.I hope you all hear something about radiation soon. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie - Saturday, September 20, 2003 1:27 PM CDT Hi Suryan, Laurie and all, Just want to let you know that we are thinking of you and hoping you get word soon about radiation treatment. My boys call you "guitar guy" - I told them about your wish and they play too. Lots of hugs! Karen Priscella (RHABDO-KIDS list) <priscellak@aol.com> Wayland, MA USA - Friday, September 19, 2003 4:39 PM CDT Hi, this is Karin from the rhabdo-kids list.. I was diagnosed in Feb 2002 with alveolar rhabdo at age 20.. (OT Dec. 17 2002) so I know what it's like to go through this at your age. Looks like you have a great support group, and thats a big help. I'm thinking of you.. keep right on fighting. Karin <bsbudgie17@hotmail.com> Vancouver, Canada - Friday, September 19, 2003 0:11 AM CDT We're praying for you Suryan. Hope you get word from the radiation docs soon. We're going to the Lighthouse this weekend for a retreat. Bob, Dad to Joseph, dx arms 10-18-01. OT 08-23-02 <artlee@integrity.com> Kennesaw , GA USA - Wednesday, September 17, 2003 0:06 AM CDT Hey all, I was just thinking about ya. Maxie had his first full dose of chemo last week, and wow its rough. He is also housebound white counts low. Maybe the doctors will let you know something soon. Keep in touch! Keep your head of Suryan!Smile....(www.caringbridge.org/va/maxie/) Christy <IMAQT430@aol.com> Amelia, VA USA - Sunday, September 14, 2003 3:15 PM CDT Just stopping by to see how things are going. I hope things stay on track, and I'll see you next time you're in Jax. Take care! Love, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@attbi.com> Jacksonville, fl - Thursday, September 11, 2003 5:19 AM CDT I check your website at least weekley, just wanted to say hi and wish you the best. You are all in my thoughts and prayers. Sheila <aerawen@aol.com> Orlando, FL - Tuesday, September 9, 2003 1:00 PM CDT That is great news, that they finally found the magic formula and he was able to go home so quickly.I hope that yoou hear something soon about radiation.I know waiting is the worst. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie Melissa <Cart30@cox.net> Cantonment, FL USA - Sunday, September 7, 2003 11:05 AM CDT Hi Suryan, my name is Christy and my son Maxie is 10. He was diagnosed with Rhabdo on July 23, 2003. We are new to all of this, but it seems if your a fighter like yourself you manage. You seem to have a good family so hang in there. I will tell Maxie about you. www.caringbridge.org/va/maxie Christy Young & Maxie <IMAQT430@aol.com> Amelia, VA USA - Saturday, September 6, 2003 2:53 AM CDT I just wanted to stop by and say hello.Im glad that you had a good time this weekend.Hopefully they will get on the move and let you know something about raditaion. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonment, FL USA - Wednesday, September 3, 2003 6:10 AM CDT hi! I was home this weekend but never got to catch up with you so I thought I'd drop a quick note. Hope everything is going well. My dorm number is 334.670-4637 feel free to give me a call and chat. Jenni Edmiston <islandpunk@hotmail.com> SGI, - Monday, September 1, 2003 6:26 PM CDT Dear Suryan! Dan and I think about you a lot, really love you and feel the universe will be with you ! Continue to fight! See you in January. Carol and Dan Sherman Carol Sherman - Thursday, August 28, 2003 12:01 AM CDT Just wanted to check in on you guys.I hope that all is well. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonment, FL USA - Wednesday, August 27, 2003 7:21 AM CDT I am so happy to hear that chemo went better this time. I am praying that the results of your scan are good news. I am always thinking of you!! Hugs and Prayers Melissa Melissa <cart30@cox.net> Cantonment, FL USA - Friday, August 22, 2003 1:09 PM CDT Hi, just wanted to let you know your name is on our prayer list at church (South End Baptist, Frederick,MD.) and that i'm praying for your healing and for comfort and strength to endure the therapy Elaine Balm Frederick, MD USA - Wednesday, August 20, 2003 7:33 AM CDT Suryan, I am so glad that it was a little eaiser this time with chemo.I know it has been so rough for you. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonment, FL USA - Saturday, August 16, 2003 5:30 AM CDT Suryan, Nice to meet you the other day. Hope you've enjoyed looking at your webpage (now that you know you have one....) :-) Take care! Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@attbi.com> Jacksonville, fl - Thursday, August 14, 2003 6:48 PM CDT Hello to the Landes Family...thinking of you all. Just checking to see how things are going. Thinking of you even when I am not checking. Druscillla - Monday, August 11, 2003 7:26 PM CDT Hi Suryan, You are such a wonderful young man.I hope and Pray that you dont have a hard time with chemo this time. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonment, Fl USA - Thursday, August 7, 2003 1:53 PM CDT Remembering you in prayer! You are such a strong young man! God has great plans for you! Carol (rhabdo-kids) mom to McKenzie 10 1/2 months old, dx 1/03 ERMS stage II, will compete tx 12/03 www.caringbridge.org/ga/mckenzief Carol Fleming Moultrie, GA - Thursday, August 7, 2003 10:22 AM CDT Hi Laurie and Suryan, It's Louise from the rhabdo-kids list (Tommy's Mum). Just wanted to say hello, and wish you good luck with the chemo on Friday. We are all thinking of you, and hoping you will soon make a full recovery. Louise Lloyd Nottingham, UK - Tuesday, August 5, 2003 6:36 AM CDT I just wanted to stop by and say hello. Hugs and Prayers Melissa Melissa <Cart30@cox.net> Cantonment, Fl USA - Saturday, August 2, 2003 12:52 AM CDT Glad to hear everything is going okay. Hang in there! Love, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@attbi.com> Jacksonville, FL - Friday, August 1, 2003 8:59 PM CDT Hi Suryan and Laurie, I'm still here hanging in and thinking about you. Low counts stink! I know how it is! My thoughts and prayers are with you always. Love, Dana NJ - Friday, August 1, 2003 4:28 PM CDT Hi Suryan! You don't know me, but courtesy of your wonderful mom, I have been following your Rhadbdo journey for approximately the last year. My youngest daughter, Emily, has Rhabdo too. She just turned three in April. I wanted to take a minute to let you know that you are an amazing inspiration to my husband and me. You are such a fighter! I have no doubt that there are days where this sucks beyond belief, but here you are fighting like a warrior. You have people all over the country praying for you. Please know that you will continue to be in our prayers. You are an amazing young man! Melissa Blair (mom to Emily, age 3, ERMS stage 4, off treatment 1/31/03) <melissalg@yahoo.com www.caringbridge.com/mi/emilyblair> Coldwater, MI USA - Thursday, July 31, 2003 9:21 PM CDT Sury, Glad to hear that your doing better, and that you're back at home.Sorry it took me so long to write, wish I was there for you, but I'm geting ready to start school. Give you a call in a couple of weeks. Justin Medil Delta, CO - Tuesday, July 29, 2003 1:35 PM CDT THINKING OF YOU ALL TODAY! SO GLAD YOU GET TO GO HOME AND ARE FINISHED WITH ANOTHER ROUND SURYAN. LAURIE, DCMH PASSED ANOTHER JACHO AUDIT (FINISHED TODAY), OH WHAT A LOT OF WORK! PRAYING FOR THAT MEDICINE TO TO ITS JOB! GAIL RECORD - Friday, July 25, 2003 10:23 PM CDT Yea!! Glad to hear my brother's feeling better. Jenni - Thursday, July 24, 2003 4:13 PM CDT Dear Family: Thank you for sharing your thoughts and updates on Suryan's condition with all of us. Our thoughts and prayers are with you. Love Tim and Patty Webb Atlanta, ga 30319 - Wednesday, July 23, 2003 6:32 PM CDT I'm glad to hear that they found the right mix of drugs to control the vomiting. I know how hard this must be for all of you. My prayers are with you always. Love, Dana Metuchen, NJ - Wednesday, July 23, 2003 12:50 AM CDT Hi! Hope Suryan is feeling a tad bit better. I guess I'll see you when you get back in town. Jenni <islandpunk@hotmail.com> St. George Island, FL - Tuesday, July 22, 2003 8:20 AM CDT Hey Suryan, Im glad you were able to start chemo but Im so sorry you are so sick.I hope you get to feeling better real soon. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonment, Fl USA - Monday, July 21, 2003 8:06 PM CDT Suryan and Laurie, I'm sorry to hear that your his counts are so low,Neupogen can really do wonders so hopefully it brought them up enough. Hugs and Prayers Melissa www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonmnet, FL USA - Friday, July 18, 2003 6:01 AM CDT Just stopped by to see how things are going. Sorry for this latest delay. It's nice to be able to at least feel in control of something, even if it's as small as your schedule. Hope I'll see you next time you're in JAX. Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@attbi.com> Jacksonville, FL - Thursday, July 17, 2003 7:26 PM CDT Thinking of you all. Karen & Donal, Parents to Ciara, Rhabdo List <flemard@bellsouth.net> Atlanta, GA USA - Saturday, July 12, 2003 1:43 PM CDT Dear Laurie,I'm so glad things are looking good.Don't ever give up. ALWAYS HOPE Christina Christina Middleburg, FL USA - Thursday, July 10, 2003 8:23 AM CDT Hi Laurie, I would gladly take some of your rainforest weather.... it is so hot and dry in Colorado.... awful. Just thinking about you and Suryan and Stephen today and praying all will continue on well. Round 5 coming up, amazing! Glad all has been going pretty well and that Suryan is feeling decent enough to enjoy the beach. The Bed and Breakfast is busy, gotta go! Gail Cedaredge, CO - Wednesday, July 9, 2003 10:08 AM CDT Hi Laurie and Suryan, I go for my round 5 tomorrow. Hope all is well and enjoy the sunshine when you can. Lots of hugs, Dana <dpjersey@aol.com> Metuchen, NJ - Tuesday, July 8, 2003 4:25 PM CDT Im so glad He's feeling good and was able to go to the beach.We live in Florida too so I know what you mean about feeling like you live in a rain forest.Yesterday was the best day in the last 2 weeks here.Ill pray for sunshine till the 14th.I hope all goes well. Hugs and Prayers Melissa Melissa <Cart30@cox.net> Cantonment, Fl USA - Tuesday, July 8, 2003 7:31 AM CDT  Happy 4th of July.I hope you are having a good day. Hugs and Prayers Melissa Melissa <cart30@cox.net> Cantonment, FL USA - Friday, July 4, 2003 2:16 PM CDT Hope Suryan is feeling better. He sure has quite a mom!! Sending thoughts of strength and hope today. Love, Natalie Martin-Rak (www.caringbridge.com/fl/lina) <vladanat@attbi.com> Jacksonville, FL - Wednesday, July 2, 2003 10:29 PM CDT  Hey Suryan, I hope you have a good day today.I'll be thinking of you. Hugs and Prayers, Melissa Melissa <cart30@net> Cantonment, Fl USA - Wednesday, July 2, 2003 6:49 AM CDT Hi -- saw the link to your page on my buddy Jackie's (I'm her chemo angel). You are an amazing young man! Hope you got good grades on all those finals! :) Keep fighting! Angel Jo <follmers@msn.com> Brooklyn Center, MN USA - Tuesday, July 1, 2003 10:33 PM CDT Hi Suryan, I got your website from Jackie's. I am Jackie's Nanny. I am sorry your not doing well right now, I will be praying for you to feel better. God Bless You and I will check on you later. Ann Parker aka Jackie's Nanny <angelann428@cox.net> Pensacola, Fl Escambia - Tuesday, July 1, 2003 6:39 PM CDT Just found your site today. I will check in on you often. Sending lots of prayers.... Rhonda Byars <jbyars@austin.rr.com> Cedar Park, TX USA - Tuesday, July 1, 2003 10:16 AM CDT  Im sorry that you got so sick.Please know that we are praying for you and thinking of you everyday. Hugs and Prayers Melissa (Jackies Mom) www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonment, Fl USA - Saturday, June 28, 2003 3:06 PM CDT I just wanted to stop in and say Hi.Suryan you seem like such a strong young man.Ill be back to check in to see how you are doing. We will be praying for you all. Hugs and Prayers Melissa (Jackies Mom) www.caringbridge.org/fl/jackie Melissa <cart30@cox.net> Cantonment, Fl USA - Monday, June 16, 2003 3:22 PM CDT Hi, Laurie and Suryan, Just checking in and glad you're back on the Island for some much needed rest. Take care and keep me posted! Robin Leach Tallahassee, FL USA - Friday, June 13, 2003 12:02 AM CDT Hi Laurie, I hope everything is going good this week for Suryan. I just wanted to let you know that I was thinking about you. Hugs, Dana <dpjersey@aol.com> NJ - Wednesday, June 4, 2003 9:13 PM CDT Hi Stephen, Laurie and Suryan, We are praying for a miracle for you. We want those tumors shrinking and relief from nausea from this weeks treatments. Our 14 year old son, Joseph, was dx w alveolar rhabdomyosarcoma in his left forearm and left armpit on October 18, 2001. He has been off treatment since August 2002. We are praying that after this protocal that Suryan will be joining us in remission!! We are with you, Bob, Joyce, Rachel and Joseph Lee Bob Lee <artlee@integrity.com> Kennesaw, Ga USA - Sunday, June 1, 2003 8:20 PM CDT Hi Laurie and Suryan, I'm glad the scans were stable. I totally understand the dissapointment. We want the Rhabdo to shrink! But stable is good for now. You are in my prayers and I know Suryan can kick this Rhabdo butt. We are in it together! Hugs, Dana NJ - Saturday, May 31, 2003 6:38 PM CDT Hi Laurie, It was great chatting with you yesterday. I wish we lived closer so we could meet face to face. I am praying so hard that Suryan's upcoming scans will show improvement. I hope that the acupunture gives him some relief with the side effects. Keep me posted. Love, hugs and prayers always, Dana <dpjersey@aol.com> NJ - Friday, May 23, 2003 4:52 PM CDT Hi Laurie, Sounds like a great concert. I'm glad you got to go! Sorry to hear about low counts. I'm praying they will go up fast. Hugs, Dana <dpjersey@aol.com> NJ - Friday, May 9, 2003 1:46 PM CDT Laurie and Suryan, Just wanted to let you know my thoughts are with you. I'm glad you were able to finish the semester's work at FSU and hope to see you back here as soon as possible. Robin Leach - Tuesday, May 6, 2003 1:57 PM CDT Laurie, Congrats to Suryan finishing the semester. I am so happy he will soon be home with you. Lots of hugs from NJ< Dana <dpjersey@aol.com> Metuchen, NJ - Monday, May 5, 2003 10:20 AM CDT Laurie, I think of you guys often, and it's so cool to periodically run into Shilo random places in Seattle. I havn't seen Suryan since he was very young, but I wish I could come visit. You mean so much to my mom, stay strong; you say you are amazed by Suryan's courage, I am amazed by your courage too. Love, Melana Melana Allison <melanaa@yahoo.com> Seattle, Wa - Saturday, May 3, 2003 11:11 PM CDT I often think about you and I am all ways looking forword to reseaving pictures of you from the emails my mother forwords to me. I hope that you are doing ok. love, megan speedie Megan Speedie <Smurfette970@hotmail.com> Denver, Co US - Friday, April 25, 2003 0:42 AM CDT Laurie, Suryan and Stephen, Just wanted to let you know that we are thinking of you all. Love the website and all the great photos of Suryan. It is great to see you all. Karen and Donal, Parents to Ciara Fleming 3 dx ERMS 9/01 off tx 7/02 Atlanta, GA USA - Tuesday, April 22, 2003 8:41 PM CDT Laurie,Sthephen and Suryan, Praying for all three of you and thinking of you often. So glad the bone marrow biopsy was negative. Thanks so much for keeping us all updated with this great website. Gail Gail Cedaredge, co - Tuesday, April 22, 2003 2:51 PM CDT Stephen, Laurie, and Suryan, I've been thinking about you and want you to know that my heart is with all of you. Hang together. Brenda Rabalais <brab35@yahoo.com> Tallahassee, FL USA - Monday, April 21, 2003 4:42 PM CDT I'm so glad the bone marrow is clear!! Hugs from NJ Dana - Sunday, April 20, 2003 4:09 PM CDT Hi Laurie, glad you had some good news. Just sent an email. Not sure where you are. Druscilla Druscilla Defalque - Saturday, April 19, 2003 12:09 AM CDT Hi Laurie, I'm so sorry that Suryan had those bad side effects. I hope that his next round will be easier. Hang in there and take it one day at a time. I'm here if you need to talk. Hugs, Dana <dpjersey@aol.com> Metuchen, NJ - Thursday, April 17, 2003 7:57 PM CDT Just checking to see how you two are doing - see you on the island next week hopefully - we've got spring break so give me a call. Polly & Jenni <psedmiston@gtcom.net> - Tuesday, April 15, 2003 7:49 PM CDT Dear Laurie and Suryan, Our family is praying for you all. Our 14 year old son Joseph was diagnosed on October 18, 2001 and began VAC treatment on November 1, 2001 and he finished on August 25, 2002. His original tumor was in the left forearm and had spread to the lymph nodes in the left armpit. We so far his scans have been clear. Next scans are April 15th, 2003. We are with you in praying that the chemo will wipe out the cancer and we also pray for Suryan's strength. Bob Lee, dad to Joseph, dx alveolar rhaqbdo 10/18/01...off treatment 08-25-02 Bob Lee <artlee@integrity.com> Kennesaw, GA USA - Monday, April 14, 2003 5:25 PM CDT Laurie and Suryan: Good job to get the site up. We've just read that the new drug will be available and hopefully started for you by tomorrow. That's the first step towards getting control and then eliminating the rhabdo.It's a tough road but keep your resolve - you can do it! With you. Robb <rnk@kingston.net> Kingston, ON. Canada - Monday, April 14, 2003 4:11 PM CDT Laurie & Suryan, You are an amazing pair. I know you can beat this monster! You are constantly in my thoughts and prayers. Lots of hugs from NJ, Dana <dpjersey@aol.com> Metuchen, NJ - Sunday, April 13, 2003 4:52 PM CDT Suryan and family. Today was the first time that I had been to your site and all I can say is that Suryan, you are an amazing young man!!! Please know that my prayers are constantly with you! Take Care and God Bless! Melissa Blair (mom to Emily, age 3, ERMS stage 4, off treatment 1/31/03) <melissalg@yahoo.com> Coldwater, MI USA - Saturday, April 12, 2003 5:44 PM CDT You are in our thoughts and prayers. Suryan sounds like he is a VERY strong young man, I pray for complete and total healing. Carol-mom to McKenzie 6 months old-ERMS stage II dx 1/03 www.caringbridge.org/ga/mckenzief Carol Fleming Moultrie, GA 31768 - Thursday, April 10, 2003 1:46 PM CDT Laurie, I am praying for Suryan's miracle! I know how hard the waiting is. I hope the results come soon and that they are good. Always thinking of you. Hugs, Dana <dpjersey@aol.com> Metuchen, NJ - Tuesday, April 8, 2003 7:24 AM CDT This is a wonderful idea. Thanks for setting it up. Druscilla Defalque <ddefalque@aol.com> Birmingham, al usa - Monday, April 7, 2003 8:01 PM CDT Laurie & Suryan What a great page.How cool it must have been to go paragliding,I've seen it over the ocean but never like that over snowy mountain ranges,that's just to wild !! So keep on kicking that rhabdo butt, I wanna see more pics like that on your 21st birthday.God Bless Rachel mom to Sydney Rachel Nickisher <Nicky94webtv.net> Lansdale , Pa 19446 - Monday, April 7, 2003 0:12 AM CDT Laurie, Our prayers are with you and Stephen and Suryan. Keep the faith. Let me know ANY way I can help. Love, Gail Gail Record <Grecord@juno.com> Cedaredge, CO USA - Sunday, April 6, 2003 10:41 PM CDT Our prayers are with all of you. Suryan has shown strength in the past and his strength and your strength will see him through this time. L Coughlin <lyncou@aol.com> Largo, FL USA - Sunday, April 6, 2003 5:11 PM CDT Loving you and here for you. Cynde and Jeff Davis GVL, F USA - Sunday, April 6, 2003 8:56 AM CDT Dear Laurie, Suryan and Stephen, Just want to let you know you are all in our heart and prayers as you fight this dreaded disease again. By the way - great pictures! By the way, if Suryan wants some good sheet music sites, just let me know (3 guitar players in our house!) Karen Priscella (Mark's Mom) and family ( rhabdo-list) <kpriscella@attbi.com> Wayland, MA USA - Sunday, April 6, 2003 8:35 AM CDT Laurie, Suryan is a strong and determined young man. I will keep him in my prayers. Please call me if you need to talk or vent. Hugs from NJ, Dana <dpjersey@aol.com> NJ - Saturday, April 5, 2003 1:52 PM CST Hi Laurie, You did a great job on this website!! I've been out of town for a few days and just read that yesterday was "the day". I hope it went as well as possible (Oh man how I remember those days). I'm always here for you if you need me. Keep your chin up and get those fighting gloves on good and tight!! Love and Hugs, Cathy (mom to ^!^ Sabrina^!^) <mrsstan@aol.com> MO - Friday, April 4, 2003 6:24 AM CST |
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