Sierra you are cuter then Tinker Bell
with your beautiful sparkling smile
You always make people feel happy
doing it in your Sweet Sierra style

Polly Pocket, Bratz and Barbie dolls
dressed in red, blue, purple and pink
Bring to mind such happy play times
for our Sierra is what her friends think

Sierra's favorite girl to watch on TV
is a singer who plays different roles
She is an everyday girl named Miley
and also Hannah Montana I'm told

But her all time favorite is Tinker Bell
a little pixie with dust of pure gold
Coming from an island called Neverland
she is Peter Pan's companion of old

"Second to the right, and straight on till morning"
is how you get to Tinker Bell's Neverland
So we hope you like the one we've created
on Sierra's web page, we think it's grand

However you came to Sierra's web page
whether you flew or clicked on a link
Please drop her a line in her guestbook
Sierra thanks you and so does Tink!

Copyright ©2007Island Princess




Special needs child needs your help in Collecting Toys, Blankets, Books, etc to Deliver to our local Children's Hospital that she spends alot of time in each year!

For more info on ways you can help please
e-mail me or call Pixiechick1429@yahoo.com
/ 1-321-264-4238

For those of you who live closer we do have a Drop off point Historic District Storage was kind enough to Donate 2 storage units for Sierra's project all year long!!! They are newer so please help me pass the word around about them! Items can be dropped off at the location of 500 Minnie St - Titusville between 9 - 5 ask for Deanna, she is keeping items in a safe place until I can get there, or I could possible even meet you there! Their phone # is 1-321-269-3280.

Also if you do not live close to us we can work out shipping arrangements ... so far lots of people are watching for good deals like at Disney.com they even had FREE shipping last week and great deals ... we have loaded up on blankets for 6.99 rather than $20 and people are just having them shipped directly to me!

Please feel free to enjoy Sierra's webpage and get a hold of me with any questions!

We look forward to meeting those who help us!

Blessings & Many Thanks Shay ~ Sierra Journey Factor & Clinton Akery & Many other member of our Extended Family and Friends!





Sierra's Video Interview with Magic 107.7
on Valentine's Day 2008
for Children's Miracle Network!
Click Here

SIERRA WAITS FOR WHEEL CHAIR
READ STORY
CLICK HERE

SIERRA IN PARADE !
READ ALL ABOUT IT !
CLICK HERE

SIERRA HELPS SPACE MISSIONS !
STORY RIGHT HERE !
(PAGE 3)
NEED ADOBE READER
CLICK HERE



Help Us Fight To get
SMA
put on the List for
Newborn Screening Test at Birth
SIGN THE PETITION
CLICK HERE






This website has been created to
help keep family friends and visitors
updated on Sierra's progress


Hello ...
for those of you who don't know
me my name is Sierra Journey
and I am 6 yrs old,
I have Spinal Muscular Atrophy,
Kidney Disease and Lung Disease ...
thank you for coming to visit my page
and to learn more about my condition . ....
if you have any questions or wanna
talk please e-mail my mom .....


Please come and check back on me often !
























Sierra lived with her mother in a tiny white cottage just outside the town of Mulberry. Mulberry was known for it’s warm days and beautiful summer sun rays. Sierra’s front yard had no trees only a patch of yellow daisies and purple hydrangeas with strokes of baby blue. Of all the houses in town - the sun shinned the brightest right outside their little cottage because their were no pines or oak trees to shield away it’s rays. When her friends Molly and Emily came to play, they would dance in the warmth of the sun. Their shadows would frolic on the ground. When Sierra watched the girls dresses swaying upon the grass, she wished if but for a moment - she could dance too. Their shadows were so lovely and small. They kissed the daisies as they spun around like ballerinas. Sierra wasn’t sure if she liked her own shadow - it didn’t spin in the same way the other girls did. If Sierra wanted to dance with her shadow - she’d have to do it in her wheelchair. And besides, she didn’t think big shadows were anywhere near as beautiful as
the smaller ones of Molly and Emily. She decided she would no longer play in the sun - she would just wait for it’s beams to fade.

One evening Sierra noticed a young girl admiring her mother’s flowers. One by the one the girl lifted the hydrangeas and the daisies into her nose and took a deep breath. Sierra had noticed new neighbors were moving into the house next door - the one with what seemed like thousands of big, tall trees. This must have been their daughter. Sierra decided to go out and make friends with her.

“So you live in the house next door. What’s your name?“ asked Sierra. “Angel.” replied the girl confidently. “Wow. You’re lucky. I wish we had all those beautiful trees!” Sierra said. “Yea, they’re awesome. You know what the best part of having those trees are? They make the most beautiful shadows.” whispered Angel. “Really? I always thought small shadows were the most beautiful shadows - because they can kiss the daisies as they dance.” Sierra answered - just a bit confused. Angel looked at Sierra and said “Really. My father says everything has a beauty all it’s own. True - small shadows can leap and bounce, kissing a few daisies here and there. But - big shadows can kiss the daisies and the hydrangeas at the same time.”

The next day, Sierra couldn’t wait to tell her Mom about her new friend. Her mother looked puzzled as Sierra shouted “I met the neighbor’s daughter. Her name is Angel. She is so cool!” “What daughter, honey? The Smith’s don’t have any children.” Sierra couldn’t believe what she was hearing. She strolled outside into the garden, looking across the field at the house with a thousand trees. Just then the wind blew. Sierra’s dress rustled in the breeze as the sun shinned below. Looking down Sierra saw her shadow - kissing both the daisies and the hydrangeas . . .along with a white feather that had fallen from the sky. It was unlike any feather she’d ever seen before. In fact, it looked a lot like an . . . Angel feather.From that moment on, Sierra loved her shadow. Although it wasn’t small like theother girls. Her shadow was uniquely her own. Beautiful in the way God made it. God >had blessed her with a shadow that could kiss every flower in the garden.

She spun her chair around and
. . .she danced.





ANGEL JANE

















*HUGS* TOTAL!
give SIERRA more *HUGS*

Get hugs of your own






















When You Wish Upon A Star
Courtesy
of
LORRAINES MIDI PAGE

Journal

Friday, May 9, 2008 10:33 AM CDT

~ Hello ~

We are well over due for an update! These past few months have been packed ... here is what has been going on!

Sierra has been out of the hospital since Jan ... she was in the hospital near her B-day and B-day weekend so we had to move her party forward ... but in the hospital is also where Sierra came up with her Christmas Project idea!

Sierra Celebrated her 7th B-day just a little late but just a fun .. Clinton and I made her a HUGE CandyLand Birthday cake!



Then we moved into a new house ... It is so nice that Sierra finally has more room to get herself around!



Easter was very nice we spent it with Friends and Family and had an Egg hunt in our backyard .. Sierra was the Easter Fairy ... (hey gotta get more use out of Halloween costumes LOL)





These are some funny Silly Stings pictures from right before we moved ....




As most of you know we do events for Children's Miracle Network often .. they are such awesome people and we always get to do the coolest stuff .. this time we got to be part of Mr Kinney's Marriott Vacation Club Golf Classic and Sierra was the Caring Classic Miracle Child .. her picture was at every table ... as soon as we got there it was time to take pictures ...
CMN all of us



Then Sierra was presented this from Mr Kinney and Marriott Vacation Club
How cool an Original Beauty and the Beast Framed Art work with an original piece of the Film strip!


Then Sierra went on a Golf Cart ride with Mr Kinney and his son Gunnar drove!


Sierra also got to spend some time with one of the nurses who helped us during one of our hard hospital times .. Thanks Michael!


Then she got to help with the Raffle after lunch







Then ... this is the coolest part ... This went up for bid and went for 2,000 and then Sierra got it! An Autographed Hannah Montana picture!! Sierra wants to meet her so bad!!!

Thanks for bidding so High Mark .. you are helping a great cause ... ALL OF THE MONEY RAISED WENT TO ARNOLD PLAMER CHILDREN'S HOSPITAL!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
These are pictures that Cathy Hinez came and did for us at our house! Thank you so much Cathy!! We love them!
































Talk to you all soon
Hugs

Read Journal History

Hospital Information:

Arnold Palmer Hospital for Children
1414 Miller St
Orlando Florida

Links:

E-mail Author: Journey1414@aol.com