|
||||||
|
||||||
Thanks for visiting our guestbook!
This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.If you do not see your entry after adding - please click on reload/refresh
- your browser may not have loaded the new page.
AOL Users: The AOL browser seems to have particular problems reloading
after this page is updated. Your Entry is probably already there
- it is just not being displayed. Close your screen completely
and re-enter it.
Click here to sign the guestbook.
Click here to go back to the main page.
Click here to view older guestbook entries.
I just stumbled upon your story through YouTube but, I am so very glad!!! I want to give so many BIG HUGS to you and your family!!! You're an awesome "little woman" Makily!!! May God bless you all!!!!
Sarah Holder <saraheholder@yahoo.com>
Hagerstown, MD United States - Tuesday, August 10, 2010 11:01 PM CDT
Hello: Please, please let me know if I can do anything to help. nancy doherty
nancy doherty <nadoherty@aol.com>
Deale, MD united States - Monday, July 27, 2009 3:21 PM CDT
I dont know what to say
linda
milton, florida usa - Saturday, February 7, 2009 6:11 PM CST
Hi Trish,
I was just viewing your web. Me and Teresa and her family all keep Makily, and the rest of your family in our prayers. She seems to be doing good. She sure is making a pretty little girl.
Love, Finley (Hernandez) Thompson
Finley Thompson <sarafin@windstream.net>
Adel, Ga USA - Monday, August 11, 2008 12:17 AM CDT
We just dropped by to check you today.
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, May 28, 2008 0:31 AM CDT
Ifound your site while visiting another
www.caringbridge.org/visit/madelyngurganus
Rhonda
New Bern , Nc 28560 - Tuesday, April 15, 2008 5:13 PM CDT
Sending you love and prayers sweet girl!! Dawn/Angel_Wings
Dawn M Schafer <Schafer@suddenlink.net>
- Friday, April 11, 2008 4:34 PM CDT
Hello Precious, letting you know you are in my thoughts and prayers. Sending "Angel hugs, butterfly kisses, love and prayers."
Angel w/Angel_Wings
Angel Venters <angel2948@aol.com>
Greenville, NC USA - Thursday, April 3, 2008 5:21 PM CDT
Happy Birthday Precious Angel!
Faye/Angel_Wings
Faye <fcinman@yahoo.com>
Lake, MS - Tuesday, April 1, 2008 1:19 PM CDT
Sweet Girl, You are in my prayers and thoughts daily. I hope no news is good news when it comes to you. Love Dawn/Angel_Wings
Dawn M Schafer <Schafer@suddenlink.net>
- Monday, March 31, 2008 8:04 PM CDT
Elise is a beautiful gift from God.
Elise Gonzalez Wright <EWright977@aol.com>
Atlanta, Ga. USA - Monday, March 17, 2008 9:37 PM CDT
Attention Prayer Warriors:
The Prayer Warriors at Angel_Wings will
be having a Prayer Vigil March 19th. between
the hours of 8-9 pm.EST. for
and all the children and adults on our Prayer
List and our Angel Families.Please join us
in prayer for these families..
Angel_Wings
Etta/Angel_Wings <grandmaettas@aol.com>
- Saturday, March 15, 2008 12:40 AM CDT
Hello Precious, stopping by to let you know you are in my thoughts and prayers. Sending "Angel hugs, butterfly kisses, love and prayers.
Angel w/Angel_Wings
Angel Venters <angel2948@aol.com>
Greenville, NC USA - Sunday, March 2, 2008 1:00 PM CST
Hi Sweet Girl, I as so glad you are doing good. I am praying for you and I will check in on you soon. Dawn/Angel_Wings
Dawn M Schafer <Schafer@suddenlink.net>
NC - Friday, February 22, 2008 9:32 PM CST
I also have a daughter with Emanuel Syndrome, Morgan Grace. She was born prematurely at 23 wks, and 1 lb, 3oz. We had a 5 month stay in the nicu. She is now 7 months old and we're very proud of her progress. Just wanted to say that I have been following Makily since the first wk that Morgan was born and you both are such an inspiration to me. It's been so hard emotionally, and trying not to blame myself for the difficulties she will face in life. But you have helped me through this and I thank you and our lord above for keeping the faith. I watch Makily almost daily, and feel very dear to her. Congradulations on all her progress, and you are truly a wonderful mother!
Breah Sebastian, Morgan Grace Sebastian <breahs@windstream.net>
Stanford, KY US - Thursday, February 21, 2008 10:41 PM CST
You don't know me, but God knows all about the prayers when your name is called out. Please know that you have many praying for you. You are a beautiful little girl!
Wendy Riddle/Angel_Wings <iluv2readtoo@windstream.net>
- Thursday, February 21, 2008 6:21 PM CST
Hello,
You have a wonderful daughter and I know it feels so good and you feel so proud when they do something new. Oh my god, like walking!! I can't wait to see my daughter walking like your daughter, my daughter has partial trisomy 7/10 there is no name or sydrome for it. She is 17 months old and recently sat independently at 15 months. You recently put that you were thinking about giving your daughter food through her G-tube and was wondering how did that go. I have thinking about giving my daughter puree food also and actually been giving her fruit juice but I extract it, not the bought ones because of all the sugar. The tube doesn't get clogged, that's what her GI was worried about.
Yazmin <beaunkev@yahoo.com>
Los Angeles, CA USA - Thursday, February 21, 2008 2:05 AM CST
Hi guys! I have been reading your website for a long time and although have never signed your guestbook, I think about and pray for you daily. Thank you for being so supportive of David. He loves reading his guestbook entries every day. Take care and give lil Makily a great big hug from all of us!! God Bless!
Karen Swain <bkswain88@yahoo.com>
Hewitt, MN 56453 - Monday, February 18, 2008 10:54 AM CST
Attention Prayer Warriors::
The Prayer Warriors at Angel_Wings
will be having a Prayer Vigil Tuesday,
February 19th between 8-9 pm EST for
and all the children and adults on our
prayer list and our Angel Families.
Please join us in prayer for these
families..
Angel_Wings
Etta/Angel_Wings <grandmaettas@aol.com>
- Thursday, February 14, 2008 6:26 AM CST
Are you a little wiggle worm Makily? cute story of how you wiggle out of the bed. Mommy may have to put rails all around to hold you in. The kid karts are great but are outgrown way to fast. I will pray for walking so you don't have to start the insurance process for a new chair. Makily kets prettier every time I visit and the painting is stunning I will have to check out the website.
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, Ky - Sunday, February 3, 2008 1:28 PM CST
Keeping little Makily Angel lifted in prayer... She is such a sweet child and has blessed my heart to watch her grow.
God Bless you all.
Amanda Garcia <leaflen@yahoo.com>
Angel_Wings, - Saturday, February 2, 2008 11:56 AM CST
It sure has been a while since I've signed the guestbook. Not sure how that happened.
So glad to read all the updates on Makily. 32 lbs. That's great. Nathan is 6 and weighs 35. What a great job she is doing!
Praying for you in Cold and Snowy Utah
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Thursday, January 31, 2008 2:00 PM CST
Glad to hear the princess is growing so well. Sorry for you, though to carry her,lol! She'll be walking soon. I feel positive. Best of luck with all your appointments and the bed. Love you guys!
Janie Tucker
- Sunday, January 27, 2008 3:52 PM CST
aww shes a cutie
katy
Myspace
Graphics- At Myspacejunks.com
Katy <lilkt94@yahoo.com>
- Saturday, January 26, 2008 10:32 AM CST
I just wanted to wish you well and tell you how beautiful your sweet girl is! She's just amazing.
Sheila
Orlando, FL US - Wednesday, January 23, 2008 11:30 PM CST
ATTENTION PRAYER WARRIORS
The Prayer Warriors at Angel_Wings will be having a Prayer Vigil Saturday, Jan. 219th between 8-9 pm EST for Makily and all the children and adults on our prayer list and our Angel families. Please join us in pryaer for these families.
Angel hugs and prayers,
Angel w/Angel_Wings
Angel Venters
Greenville, NC USA - Sunday, January 13, 2008 4:40 PM CST
Love the Christmas video, too sweet. She is so cute and precious. Glad to hear that you are home and she is felling better. Big hugs from Sara.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@embarqmail.com>
- Thursday, January 3, 2008 8:03 PM CST
Happy New Year Sweet Baby,
Amanda Garcia/ Angel_wings <leaflen@yahoo.com>
- Wednesday, January 2, 2008 8:45 AM CST
Hello,
I have been watching all your videos on onetruemedia and I just love Makilya she is so adorable and I am also glad to hear she is feeling better after being sick and in the hospital.
You have also viewed my daughters videos on there and I just wanted to say hello again and let you know we have a new site for her and want to let you know you can pop in anytime to see how we are doing.
Hugs and prayers,
Crystal
www.evanichole.blogspot.com
Crystal <crystalm1476@hotmail.com>
Round Lake, Il USA - Monday, December 31, 2007 9:54 PM CST
Happy New Year! Celebrate 2008!
I hope this finds everybody feeling well and in good spirits.
Sending Angel_Wings hugs, praises and prayers. Keep up the good fight, sweet one.
"You alone, O Lord, make me dwell in safety." Psalm 4:8
Polly from Angel_Wings Prayer Warriors <polly1511@gmail.com>
Rolette, ND USA - Monday, December 31, 2007 3:18 PM CST
A New Year’s Prayer
May God make your year a happy one!
Not by shielding you from all sorrows and pain,
But by strengthening you to bear it, as it comes;
Not by making your path easy,
But by making you sturdy to travel any path;
Not by taking hardships from you,
But by taking fear from your heart;
Not by granting you unbroken sunshine,
But by keeping your face bright, even in the shadows;
Not by making your life always pleasant,
But by showing you when people and their causes need you most,
and by making you anxious to be there to help.
God’s love, peace, hope and joy to you for the year ahead.
Numbers 6:24-26
24 "The LORD bless you
and keep you;
25 the LORD make his face shine upon you
and be gracious to you;
26 the LORD turn his face toward you
and give you peace."
With Love and Prayers MJ/Angel_Wings
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Sunday, December 30, 2007 7:09 PM CST
Hey there, I had not stopped by in a few weeks so I had no idea that Makily had been sick. Wow what a scare. It can sure happen so fast. We also had a short trip to the ER. We only had to stay for 6 hours though.
I loved your video! Makily just looks so happy and playful. I'm so glad that you had such a good Christmas. What a special little angel you have here on this earth! My little angel has horns today and is begging to be freed from her highchair where I placed her for a few minutes of sanity! She is gettin into everything all at once and I just can't keep up with her. I better go let her out of "jail". Take care and praying that you all stay healthy!
Love, Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Friday, December 28, 2007 11:31 AM CST
Oh Little Child
Oh Little child so near the tree
The precious view you clearly see
Adorned in white, a glistened sight
A chilling warmth, it’s nearly night
Excitement grows within each eye
A splendid match, so bright yet shy
You make each wish, each secret part
A ray with God, so fills your heart
Your wants are small, unselfish child
Not to be wrapped, branded or styled
A world of hope, filled full of peace
A caring call, let love increase
Next year this child so wants to be
Back out to watch, this growing tree
What of our wants as time goes by
Will hope and peace and love climb high
©2001Roger J. Robicheau
MERRY CHRISTMAS
MJ/Angel_Wings
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Monday, December 24, 2007 10:49 AM CST
We just dropped by to wish you a Merry Christmas!
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Sunday, December 23, 2007 3:16 AM CST
My God lay his hand upon Makily and her innocent soul.
Tom Kelly
St. Petersburg, FL USA - Friday, December 21, 2007 10:31 AM CST
Makily i just love the picture of you with
Santa!You are just so,so precious sweetheart!
I am very happy to hear that you are home and
doing better and we wish you and your family
a very Merry Christmas from Angel_Wings..
Trish/Angel_Wings <Boyerangeltrish@aol.com>
Kingston, TN USA - Wednesday, December 19, 2007 1:00 PM CST
so glad shes ok I think of makily everyday. shes so pretty. i look at her and see my daughters future. god bless.
joy caffrey <joyboytinkertoy@yahoo.com>
clover, sc - Tuesday, December 18, 2007 11:29 PM CST
Yay!!! So glad you guys are home! Makily looks like a porcelain doll in her pic with Santa. Gorgeous!!!!
Janie
- Monday, December 17, 2007 4:42 PM CST
Whooohoooo! So grateful to hear this honey. Makily is such a big, big girl! Makily....we love you honey! So glad momma gave you a big girl bath and massage time. I know you were so glad to get home.
Love you Trish....I'll alert Luke that Makily is home!! Glory to God!
Andrea <andreas7@cebridge.net>
denton, tx - Monday, December 17, 2007 12:35 AM CST
THE CANDY CANE
Jesus Gentle Shepherd,
This cane of red and white
Proclaims the sweet love story
Born on Christmas night.
This cane, you see, when turned around
Begins your name of Love
And now becomes a symbol
Of peace proclaimed above.
The lively peppermint flavor
Is the regal gift of spice.
The white is your purity
And the red your sacrifice.
And so this cane reminds us
Of just how much you care
And like your Christmas Gift
To us it's meant for all to share.
Merry Christmas
MJ/Angel_Wings
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Monday, December 17, 2007 11:21 AM CST
You are all in my thoughts and prayers! My son is 3 and has asthma and he has to have breathing treatments daily(since he was 18 months old). It is so scary when he gets sick or has a flare up. He had pneumonia last winter and when it comes to his breathing it just scares me! I feel for all of you! Get well soon Makily!!
Gina Roberts <bgroberts01@msn.com>
Akron, OH USA - Monday, December 17, 2007 9:42 AM CST
Praise GOD GIRL! Just emailed you and then thought...umm, probably need to check her site. So excited to hear she's doing great. I've been so worried all day and praying.
Love you babe....SO GLAD SHE LOVES HER BIG OBNOXIOUS BALLOON!! Daddy's always know!
Andrea Hughes <andreas7@cebridge.net>
denton, tx - Sunday, December 16, 2007 9:00 PM CST
Fellow Prayer Warriors
The Prayer Warrior's at Angel_Wings
will be having a Prayer Vigil on
Dec.19th. between 8-9pm.EST for Makily
and all the children and adults on our prayer
list..Please join us in Special Prayer for all
these families..
MJ/Angel_Wings
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Sunday, December 16, 2007 1:29 PM CST
Oh sweetie, I posted prayer on my blog. Know that she's being heavily prayed for in Texas. Keep us updated and I'm just so update by this. I pray for healing! NOW.
Much love sweetie,
Andrea/Luke
Andrea (Luke's mom) <andreas7@cebridge.net>
Denton, Tx - Sunday, December 16, 2007 9:53 AM CST
Your family is in our thoughts and prayers! Please feel better soon Makily!!
Melinda Taylor <melinda_taylor@comcast.net>
- Sunday, December 16, 2007 9:17 AM CST
Praying for Makily, family and a safe trip home for Makily's dad.
Esther and Madalyn
New Haven, IN - Friday, December 14, 2007 4:40 PM CST
Praying so very hard for Makily and family.
Carlyn <Leedstaylor@gmail.com>
Birmingham, AL - Friday, December 14, 2007 2:52 PM CST
Praying so hard for you sweet pea!!
Julie Curosh <JCxKYgal@aol.com>
Portage, IN United States - Friday, December 14, 2007 12:58 AM CST
You guys are all in my prayers!!! I pray that she makes a speedy recovery, that the doctors can find out what is wrong and make her better soon, I pray Allen makes it home safely! And I pray for you Trish for the strength that I know you have!!! I love you guys!
Katrina Blatz <klb45324@yahoo.com>
Miamisburg, OH USA - Friday, December 14, 2007 9:12 AM CST
I hope the doctors can make you feel better very soon Makily. You and your family will be in my thoughts.
Kendra
IN - Friday, December 14, 2007 9:10 AM CST
Oh sweet baby girl... praying you feel better really soon! Big huge hugs and kisses!! Love you!
Heather (shrubski) <shrubski@aol.com>
Long Island, NY USA - Friday, December 14, 2007 9:03 AM CST
Makily- Hope you feel better real soon. Hurry up 'cause Santa is waiting to see you!!
You are all in my thoughts
love
Ali -Fabyans mum www.caringbridge.org/visit/fabyandimaggio
Ali Di Maggio <a.dimaggio@btinternet.com>
Bristol, England - Friday, December 14, 2007 8:12 AM CST
Hope you get to feeling better soon! I'm saying a little prayer for you sweetie!! Hugs!!!
Reneeinnc
Elizabeth City, NC USA - Friday, December 14, 2007 7:56 AM CST
You are all in my prayers! Love you guys, Janie
Janie Tucker <janietucker@yahoo.com>
- Friday, December 14, 2007 7:17 AM CST
Get well soon Makily! I am sorry you don't feel good. I will pray for you! ^_^
Jenny <jassie26@hotmail.com>
madison, wi us - Friday, December 14, 2007 2:19 AM CST
Poor baby girl. We are praying for you. Please keep us updated.
Holly Dix
Riverview, FL - Thursday, December 13, 2007 9:40 PM CST
hey there, one of your many prayer warriors cheching in, and letting you know you are in our constant prayers.
Standing on Faith...
Amanda Garcia/ Angel_wings <leaflen@yahoo.com>
- Thursday, December 13, 2007 4:08 PM CST
do you realize in your photo bucket there's a great pic of makily flipping off the camera while she's deviantly smiling at the camera with her tongue sticking out?
tara <pisopase@yahoo.com>
- Monday, December 10, 2007 7:33 PM CST
Hi there... Makily's story has been so inspirational. I will continue to come, read, check in and pray... Pray hard, and give thanks for this awesome Blessing the Lord has provided the world with. God Bless you.
Amanda Garcia <leaflen@yahoo.com>
- Monday, December 10, 2007 5:18 PM CST
Hi Sweet Little Makily I pray you are feeling well and happy today. I was so happy to hear you enjoyed the Christmas parade and all the other festivities. Hugs and Angel Kisses, as always you will be in my thoughts and prayers.
MJ/Angel_Wings <marijeighn@gmail.com>
Orlando, Fl - Sunday, December 9, 2007 11:37 AM CST
I hope you are having a good week. We are thinking about you.
caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Tuesday, December 4, 2007 5:11 PM CST
I saw your update on the SCE group and checked out the blogs. I had this little poem sent to me and I just wanted to pass it on. I don't know who wrote it but it's a wonderful reminder that what the world sees as perfect isn't always what God sees as perfect. Hope you like it. The kids are beautiful! Conratulations on the new addition-he's adorable too!
"I know what you are thinking. You need a sign. What better one could I give you than to make this little one whole and new? I could do it; but I will not. I gave this mite a gift I denied to all of you- eternal innocence. To you she looks imperfect, but to Me she is flawless. Like the bud that dies unopened or the fledgling that falls from the nest, she will never destroy. She will remind you every day that I am who I am, that My works are not yours, and that the smallest dust-mite whirled in darkest space does not fall out of My hand. I have chosen you. You have not chosen me. This little one is My sign to you. Treasure her!"
Suzanne Waggoner <suzannes_special_kids@comcast.net>
Shelbyville, IN USA - Friday, November 30, 2007 7:29 AM CST
The Smallest Prayer
God hears the very smallest prayer,
Nor sends a cross too great to bear,
And though we stumble now and then,
He always picks us up again.
There is no moment day or night,
When we are hidden from His sight,
No wall too high nor door too stout,
To keep His loving care without.
His ways are wiser than our own,
His strength remains when ours is gone,
We must not doubt nor question why,
He sends the answers by and by.
And this I know within my heart,
All darkness fades and shadows part,
And that sometime, somehow, somewhere,
God sees and answers every prayer!
~~Grace E. Easley
Angel Polly from Angel_Wings Prayer Warriors <polly1511@gmail.com>
- Thursday, November 29, 2007 8:43 PM CST
Aww. I read your story and your current journal. You have such a brave and beautiful little girl. The tough roads she has faced in life will only make her stronger.
Hoping Maliky gets to feeling better soon.
Heather (aka poet_hlplay on FosterParent board on BabyCenter)
OK - Tuesday, November 27, 2007 1:30 PM CST
FELLOW PRAYER WARRIORS
Tonight between the hours of 8-9 pm EST Angel_Wings
will be holding a prayer vigil for Makily and each of the
children and adults on our prayer list..Please join us
in prayer for these families..
Thank you so much
MJ/Angel _Wings <marijeighn@gmail.com>
Orlando, Fl - Tuesday, November 27, 2007 9:55 AM CST
Hi, sorry to hear that Makily is sick- the poor thing!
Have you tried at night putting a pillow underneath Makily's matress, between the base of the bed and the matress? I know pysiotheapists suggest peple do this when they have an injured ankle.
I love the new pictures, Makily is so beautiful!
Lucy <lucythomson@shcs.schoolzone.net.nz>
- Monday, November 26, 2007 5:51 PM CST
Oh Trish. Praying for your sweet girl. I can so see her be so happy in the midst of this. She's such an angel honey. Praying for her heavily. Love, me/Luke
andrea hughes <andreas7@cebridge.net>
denton, tx usa - Monday, November 26, 2007 2:15 AM CST
Sorry to hear that your happy girl is sick. Hey have you ever heard of the ComfyLiftBed? Is is supposed to end the problem of scooting down and getting flat in bed. I think you can just google it to find out about it. It is a bit pricy but sounds well worth it.
Hope Makily gets to feeling better soon.
Love, Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Sunday, November 25, 2007 9:41 PM CST
Hi Guys! I'm sending prayers and hugs your way. Makily Get well soon so you all can get some rest and you can get back to school. Love you! J
Janie Tucker
- Sunday, November 25, 2007 9:53 AM CST
Hi Makily Dropping by to wish you and your family a very happy and blessed Thanksgiving. I will be lifting you all up in prayer for a wonderful day.
MJ/Angel _Wings <marijeighn@gmail.com>
Orlando, Fl - Wednesday, November 21, 2007 6:48 PM CST
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Wednesday, November 21, 2007 5:51 PM CST
OMG... I have a little guy in my class who does something similar and we swear he's talking with his angels, too! I wouldn't doubt that's what she's doing one bit. Thanks for the updates! Love you all!
Janie
- Tuesday, November 20, 2007 7:41 PM CST
Loved the video of Makily and her friends! All I can tell you is that my son, Andrew, insists that he has seen his Grandmas (both are in heaven) in different places. Sometimes he hears them talking to him. (Andrew is now 16) I told him that his Grandmas are watching him, and are always there for him. I agree with you that these kids just have special gifts.....
Terri White <rrtmtl@aol.com>
Seattle, WA - Monday, November 19, 2007 7:57 AM CST
Hi again, I was just about to check the links from Makily's website but they aren't there anymore, why is that?
Lucy. <lucythomson@shcs.schoolzone.net.nz>
- Monday, November 19, 2007 2:11 AM CST
Oooh, sounds like you and Makily have been having a lot of fun lately!
I love the new video, it is so sweet, maybe Makily has imaginary friends? I used to have two of them when I was little! But yes it may be Makily's gurdian angel that she is intently watching! It so cute anyway!
Makily is such an adorable little girl!
Lucy. <lucythomson@shcs.schoolzone.net.nz>
New Zealand - Monday, November 19, 2007 2:07 AM CST
YOUR IN MY THOUGHTS AND PRAYERS GOD BLESS YOU
Debbie Anderson <debbiea1958@yahoo.com>
Fort Edward, New York 12828 United States - Saturday, November 17, 2007 9:22 PM CST
Hello Makily!! Luke says hi babe. (LOL!) ok, Trish. Girl..we need to talk. First off, your photography is amazing. I love your pictures and you need to take the jump and launch your photography career! 2nd: Anyway you could combine the caringbridge and blog!! I get so distracted and only check your blog all the while I'm missing good stuff here!! DANG! Love Makily's outfit. So sweet. She rocks. Sorry I've been on P2P sabbatical. Email me: andreas7@cebridge.net. (again please) I didn't keep your address in my book and I've been wanting to email you. Ok my love, how are you? I do so miss you and get your sweet comments all the time. Please forgive my P2P delay. Been burned out. Makily looks amazing.
Huge hugs-----give her a kiss for me and tell her that Luke has eyes for Makily only! He loves her. Andrea
Andrea (mommy to Lukester) <andreas7@cebridge.net>
Denton, Tx 76227 - Friday, November 16, 2007 12:46 AM CST
LOVED the new pictures from Halloween. How in the world do you get her to sit still for so many poses? You have a real gift! Love you all!
Janie Tucker
- Monday, November 12, 2007 8:58 AM CST
Morning little Makily I so enjoyed your Halloween pictures and I love your doll. Bet she is your best buddy. I hope you enjoyed your visit to Mr. Richard !! I will be keeping you in my thoughts and prayers.
MJ/Angel _Wings <marijeighn@gmail.com>
Orlando, Fl - Sunday, November 11, 2007 5:46 AM CST
Hi there!
Just stopping by to let you know I'm thinking about you today and praying for you. It is great to read you are doing so well. Keep up the good work, sweet one. You are one amazing little lady! ;D
Sending you oodles of Angel Hugs, Kisses, Praises and Prayers.
"We wait in Hope for the Lord; He is our help and our shield. In Him our hearts rejoice, for we trust in His holy name. May Your unfailing love rest upon us, O Lord, even as we put our hope in You."
Psalms 33:20-22
http://www.groups.yahoo.com/groups/Angel_Wings
Polly/Angel_Wings <polly1511@gmail.com>
Rolette, ND USA - Saturday, November 10, 2007 5:29 PM CST
I just found your page. My prayers are with you and your little girl. I have kids of my own and my heart breaks for you. But in the same time I can see she is so special. She is beautiful. Love her Halloween costume. I hope and pray God sends his blessings and gives you all some peace and healing. Hugs to you and your little girl. I will be praying for you all. God Bless.
Alicia <lovin_the_unexplained@yahoo.com>
Middlesboro, Ky USA - Wednesday, November 7, 2007 8:17 AM CST
Loved the halloween video. What a photogenic baby girl! Hope all is well with everybody! Miss ya!
Janie
- Sunday, November 4, 2007 3:35 PM CST
Hi there,
What a great video of Makily's Halloween! You are so clever and so quick! Makily looked so cute and she really looked like she was enjoying the whole thing!
Take care,
Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Saturday, November 3, 2007 11:50 AM CDT
I just loved your disney video. She is so adorable I just want to give her a big squeeze. You are so blessed. Hugs to all.
Barbara Hoffman (www.caringbridge.org/nj/saraswalk) <jbashoffman@embarqmail.com>
- Wednesday, October 31, 2007 9:46 AM CDT
Makily,Just stopping by to say hi and wishing you a wonderful week.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, October 31, 2007 9:08 AM CDT
Glad to hear you had a good time at Disney.
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickory tech.net>
Minnesota United States - Friday, October 26, 2007 12:15 AM CDT
Just stopping by to say hello and let you know I am thinking of you.
Whoever comes to me I will never drive away. John 6:37
Elaine/Angel_Wings <eshattuck1@cox.net>
- Thursday, October 25, 2007 9:33 PM CDT
Loved the Disney video. The teacup part made me dizzy, lol! Looks like the princess had a blast.
Janie <janietucker@yahoo.com>
- Saturday, October 20, 2007 6:50 PM CDT
You are in my daily prayers!
Nor is there salvation in any other, for there is no other name under heaven given among men by which we must be saved. Acts 4:12
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Saturday, October 20, 2007 5:40 PM CDT
Looks like everyone had a fabulous vacation! How cute is Makily on the the teacup ride? She is so beautiful! She's getting so big! It's really noticeable when she's sitting in her stroller, she looks like she won't be able to use it much longer without her legs reaching the ground! Way to grow the baby, momma!
Susan
- Thursday, October 18, 2007 5:02 PM CDT
yea! great slide show...and i was in it! had a blast with you guys..misss you!
tara <pisopase@yahoo.com>
tampa, fl - Thursday, October 18, 2007 4:11 PM CDT
Said a prayer for Delaney. How did it go? Did you photoshop you/Makily's sketch pic above? I love it.
She's my big girl. Love you honey,A
Andrea (mommy to Luke) <andreas7@cebridge.net>
Denton, Tx - Saturday, October 6, 2007 11:39 PM CDT
Just wanted to stop by and say hello. I hope you are enjoying your weekend.
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Saturday, October 6, 2007 5:16 PM CDT
I wanted to drop a line in your guestbook to let you know you have someone else praying for you! God Bless you and your family!!
www.caringbridge.org/visit/zackarykimel1
carrie kimel <ckimel@yahoo.com>
harlem, ga - Saturday, October 6, 2007 1:53 AM CDT
Hi Makily,
Glad to hear that you are enjoying school. That is so important. Thought I would stop by for a quick visit. Hope you are having a great week!
Trish, I'm praying for your neice.
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Wednesday, October 3, 2007 12:15 AM CDT
Tell Deb I'm praying for Delaney and the whole family. Love you guys! I'm soooo glad Makily is enjoying school. Love, J
Janie Tucker <janietucker@yahoo.com>
- Tuesday, October 2, 2007 7:24 PM CDT
Good Morning! I hope you have a great weekend, and you are in my daily prayers!
Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need. Hebrews 4:16
Special Hugs Today,
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Friday, September 28, 2007 3:32 PM CDT
Makily,Just stopping by to say hi and to let you know we are thinking of you and wishing you a happy Fall.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Thursday, September 27, 2007 11:01 PM CDT
Hi everyone,
I am happy that Makily is doing well. She deserves that! Love the video of her. She is getting so big and beautiful! I will keep you in my thoughts. Have a great night!
Jenny <Jassie26@hotmail.com>
- Thursday, September 27, 2007 10:22 PM CDT
Thanks for the update! Cool video. Glad to hear the great news. Love you guys! J
Janie Tucker <janietucker@yahoo.com>
- Tuesday, September 25, 2007 9:17 PM CDT
I visit your website almost daily although I rarely sign the guestbook. I just wanted to let you know I think of You guys often. Makily is becoming such a big girl and it is great to see her making such progress. Disney will be sooo fun and exciting!! Goodluck with the new school schedule :-) It will be just fine!
Gina Roberts <bgroberts01@msn.com>
Akron, OH USA - Tuesday, September 25, 2007 2:18 PM CDT
Hi Makily, I am so glad to hear that you love school. A trip to Disney how exciting. I pray that you will continue to have wonderful days gorgeous girl.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, KY usa - Sunday, September 23, 2007 9:39 PM CDT
Your going to Disney!! I'm so jealous! Ok---so I finally put the caringbridge site on my blog. I love reading the updates. She's so dang cute. Stick on earrings are cool by the way. Lukes Loves Makily whole lots. FYI
Andrea---Makily's mother-n-law <andreas7@cebridge.net>
Denton, Tx USA - Monday, September 17, 2007 9:49 PM CDT
Still praying for you!
Pay attention and listen to the sayings of the wise; appy your heart to what I teach. Proverbs 22:17
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Sunday, September 16, 2007 0:14 AM CDT
What a beautiful little girl Makily is. You are so lucky to have her. I've been following your site. She's come a long way in the last year. Even though Makily's developing slower than typical children, she's growing and learning new things every day. I hope someday I get the oppertunity to be a mother.
Laura <llgilmou@ualberta.ca>
Edmonton, AB Canada - Saturday, September 15, 2007 0:46 AM CDT
Makily,
wow...I'm glad you like school so much. You are so cute I love the picture of you on the top of the page. Who wouldn't fall in love with you? I'm sorry I've been kind of scarce lately, it seems that I am getting too busy! Anyway...thought I would stop by to let you know that I am always thinking of you and praying for you.
Love and hugs always,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Friday, September 14, 2007 12:23 AM CDT
That is the cutest picture on top!!! She is just so beautiful!!!! I am so happy that she likes school so much. And the fact that they love her at school so much IS NO SUPRISE TO ME- WHE IS WONDERFUL!!! WHO WOULDN'T JUST FALL HEAD OVER HEALS FOR THAT LITTLE PRINCESS- WE DID ALL THE WAY FROM MINNESOTA!!!
We know that Makily is loving school but I want to also know how mom is handling the change?! How is your day going without Makily??? It has got to be pretty weird to send her off to school and then try to think of what you are going to get done for the day and realize that she isn't going to be with you! It is truly a good thing for both of you. Having her in school around other children and time to venture out without mom and dad (as much as we moms hate to think that they can do that!!! ;O( ) and this is also a really good time for you to have some "me" or "mommy" time. I hope that you find some time to do something nice for yourself. You are a very hard working, dedicated, wonderful parent and you deserve some time whether it be a nap, a relaxing bath with bubbles and candles, or taking a walk...I hope that you find something that makes you feel extra special and really good about yourself! We haven't decided if we will start Riley in school in January 2008 (she turns 3 December 20th) or if we want to wait until the next school year, we will see...hearing how much Makily likes it makes me feel better and more relaxed about the whole thing!
Well, I put a new video of Riley holding her head up on the web site, so if you get time, check it out. She is finally getting out of her plateau period and is showing interest in keeping her head up more, wanting to be sitting up, and wanting to be on her tummy more and not just on her side! Our girls have to work so much harder than most kids and they still come through learning more and more stuff- they are amazing!
We send you guys all of our love and prayers!
Nikki, Aaron, and Riley
www.caringbridge.com/mn/rileynicolle
The Lignell-Spaulidngs <aaronandnikki@charter.net>
Farmington, MN - Tuesday, September 11, 2007 1:17 AM CDT
Makily,
You are such a BIG girl now! I am so glad you get to go to school. I'm proud of you, too.
Keep smiling, Princess!!!!
Sharon Pearson, mom to Bethany, Heavenly Hannah, and Benjamin
Wyoming, MN - Sunday, September 9, 2007 9:11 PM CDT
Makily,Just stopping by to say hi and hope you have a wonderful week.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, September 9, 2007 11:13 AM CDT
Hello, just here to brighten your day!
How gracious he will be when you cry for help! As soon as he hears, he will answer you. Isaiah 30:19
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Saturday, September 8, 2007 6:07 PM CDT
Trish,
Thank you for visiting William's site and for sharing Makily's story with us. She is truly a blessing. I enjoyed watching the clips of her. What an adorable little girl. I was happy to read how much she enjoyed school. We will continue to follow her story and keep up on her progress. Our thoughts and prayers are with you!
Take care,
Bridget Decker (mom to Angel William)
www.caringbridge.org/visit/williamdecker
Bridget Decker
Lighthouse Point, FL - Friday, September 7, 2007 9:41 PM CDT
Adorable is the word for that chicky! Each picture is better than the next. Her hair is getting so long. Has she lost the curly curls that she used to have? I don't blame you on the ear thing. I am the same way with Madison. Jordan has pierced ears but I just could never make myself do it to Madison. So glad to hear that she loves school and of course all the workers would love Makily, what's not to love!
Take care,
Pam and Madison
Hey I noticed on the picture with Makily and her Daddy the little rolls of chub. No, not on the daddy :-) on Makily!
www.caringbridge.org/visit/madison
Pam <aquanutt1@bellsouth.net>
- Friday, September 7, 2007 2:19 PM CDT
I am so glad that school is going well. Keep up the good work, Makily.
Holly <hmmmcormick@yahoo.com>
- Friday, September 7, 2007 10:35 AM CDT
Thanks for the updates! Love the new picture. Makily is a doll. I don't blame you with the ear piercing. Go with your gut! Glad school is going well. Love, J
Janie <janietucker@yahoo.com>
- Thursday, September 6, 2007 6:30 PM CDT
Makily stick on earings looked so sweet! I think you have made the right decision with not piercing her ears, she has been through a lot!
I love the new photos, her bikini is so sweet! Glad little princess Makily is enjoying school!
Lucy
- Thursday, September 6, 2007 2:51 PM CDT
How did she go from a baby to a big girl over night? So glad she is loving school and how ideal that there are only three in the class.
Take care,
Pam and Madison
wwww.caringbridge.org/visit/madison
Pam
- Wednesday, September 5, 2007 6:54 PM CDT
Your Lil girl is so beautiful
Hilary <hilary821@bellsouth.net>
Pierre Part, LA USA - Sunday, September 2, 2007 1:40 PM CDT
you are in my daily prayers and I hope you have a great week.
I will praise you, O LORD, with all my heart;
before the "gods" I will sing your praise. Psalm 138:1
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Sunday, September 2, 2007 12:24 AM CDT
Thinking of you and hope you have a good weekend!
Praise the LORD.
Praise the name of the LORD;
praise him, you servants of the LORD Psalm 135:1
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Saturday, September 1, 2007 5:10 PM CDT
Makily, What a big girl you are getting to be! School already?! It just doesn't seem possible! I hope you have a great weekend.
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com; samibabi@hickorytech.net>
Minnesota United States - Saturday, September 1, 2007 9:52 AM CDT
Hey Makily, I am so glad you are enjoying school! I love you little painted tonails they look so pretty! Did your mommy give you a pedicure?
And I think your little pink shoes are gorgeous as well as your yellow top and denim mini skirt, I love that yellow top it is so cool!
Tell your mommy I hope she adjusts to spending her days without her little princess! And also tell her that that if you happy that she should be happy too!
Lucy <lucythomson@shcs.schoolzone.net.nz>
Dunedin, New Zealand - Friday, August 31, 2007 10:42 PM CDT
Glad to hear Makily had a great first week of school. She looks glamorous in her leopard outfit, too. Hang in there, Mom. You've worked hard for this break. Love, J
Janie
- Friday, August 31, 2007 9:48 PM CDT
Dear Makily and family here is my prayer for you tonight:
Isaiah 41:13 ...Do not fear I will help you
and....44:8 ...Do not tremble, Do not be afraid.
Praying little prayers for you all the day long
just for you
Hoping all is well and hoping in you.
Marnie from Angel_Wings
Marnie <marniestanish@msn.com>
- Friday, August 31, 2007 1:16 AM CDT
Thats awesome. Congrats. I am rooting for you Makily. You can do anything! I hope that you have a fun time at school and learn a lot. :) Your an amazing girl!
Jenny <Jassie26@hotmail.com>
madison, wi us - Thursday, August 30, 2007 8:44 PM CDT
Hey there, girls! I was just stopping by to say hi and check in on Makily and the family! Each time I check in, I look so forward to seeing the new pictures and videos of Makily! She is so darn cute!!! I am so excited to hear how she likes school! We have the option of sending Riley in January 2008 or waiting until the next school year (September 2008). Just the idea of my little princess going off to school freaks me out! I just can't believe that the girls are growing up so fast!!! I just had to go through Riley's closet and clear out all the clothes that she has grown out of- unreal!! I swear we just got her some new clothes and they are getting tight already!
I am sorry to hear about all the problems that have been going on with Makily's feeding tube and button. We have been pretty lucky with Riley's but every once in a while, we have to clean around her tube extra good with antibiotics for a week or so to clean it all up. Well, I am going to go and play with my little angel- please give Makily big hugs and lots of hugs for mommy and daddy too!
You are always in our thoughts and prayers!
Nikki proud mommy to Riley (2.5 years old, Aicardi Syndrome) www.caringbridge.com/mn/rileynicolle
The Lignell-Spauldings <aaronandnikki@charter.net>
Farmington, MN - Wednesday, August 29, 2007 9:01 PM CDT
Love the new toy! Gotta find that for Gabby! The standing made me teary eyed! I love it! Go Makily! Good luck with school Makily! Have fun!
Melinda Taylor
Lancaster, PA - Tuesday, August 28, 2007 6:17 PM CDT
Best of luck on Wed. I'll be thinking about all of you. I'm jealous she isn't in my class! Love you! J
Janie Tucker <janietucker@yahoo.com>
- Monday, August 27, 2007 3:22 PM CDT
I hope Makily has had a good day at Developemental Pre K! It sounds so exciting.
She really is such a beautiful child, and I'm so happy that she is doing well!
Lucy <lucythomson@shcs.schoolzone.net.nz>
Dunedin, New Zealand - Sunday, August 26, 2007 6:11 PM CDT
I am so happy for Makily. I will keep her in my prayers. She looks so big and beautiful now. She is amazing!
Jenny <jassie26@hotmail.com>
madison, wi us - Thursday, August 23, 2007 11:50 PM CDT
Jude 21 Keep yourselves in the love of God.
Praying for YOU Makily.
Marnie from Angel_Wings.
Marnie
- Thursday, August 23, 2007 8:56 PM CDT
Hi Trish,
I can't believe how big Makily is. Jordan is 5 and she weighs 31! Not to mention that Jordan is way taller than Makily. So you can imagine, no chub for me to squeeze.
I love the videos you put on. She is doing so well. Her standing is looking really good. I will be thinking of you as you send your baby off to school. What will you do with yourself? Hoping that she loves it and really gains a lot from it.
Take care,
Pam
www.caringbridge.org/visit/madison Madison is sharing her site with our little foster baby Leo right now.
Pam
- Thursday, August 23, 2007 6:23 PM CDT
Just a note to let you know I'm thinking about you and praying for you. May the Lord continue to bless you with exactly those things He sees you stand in need of. You are a beautiful Child of God and He loves you very much.
Praying for you today and every day.
Sending you oodles of Angel Hugs, Praises and Prayers.
"The Lord is my shepherd."
http://groups.yahoo.com/groups/Angel_Wings
Polly from http://groups.yahoo.com/groups/Angel_Wings <polly1511@gmail.com>
- Tuesday, August 21, 2007 2:46 PM CDT
Makily,Jinkies we just stopped by to say hello and hope you're having a great summer.
God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, August 19, 2007 8:41 PM CDT
I am praying for sweet Princess Makily every day and sending her lots of (((Angel Hugs))) and butterfly kisses.
Priscilla, Angel Wings
- Sunday, August 19, 2007 6:43 PM CDT
Good Morning! Praying you have a great week!
May the Lord make you increase and abound in love to one another and to all. —1 Thessalonians 3:12
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Sunday, August 19, 2007 2:06 PM CDT
I have been checking on your baby for awhile now. She is so precious. My Grandson was born with Pierre Robin and has many complications with it. For awhile, we too, were not sure he was going to make it and then didn't know if he would be mentally OK. He will be 2 next month and is doing wonderful. He still has more operations to go, but God has healed him, so many times, we are not worried. It is just so nice to see God take care of these very special little ones.
Cindy Branham <cindybranham@hotmail.com>
Lexington, Ky Fayette - Friday, August 17, 2007 3:04 AM CDT
I have been checking on your baby for awhile now. She is so precious. My Grandson was born with Pierre Robin and has many complications with it. For awhile, we too, were not sure he was going to make it and then didn't know if he would be mentally OK. He will be 2 next month and is doing wonderful. He still has more operations to go, but God has healed him, so many times, we are not worried. It is just so nice to see God take care of these very special little ones.
Cindy Branham <cindybranham@hotmail.com>
Lexington, Ky Fayette - Friday, August 17, 2007 3:02 AM CDT
That was a great update. I am so happy for you guys. I love the videos of Makily. She is so happy and cute. :) What an angel.
Jenny <Jassie26@hotmail.com>
madison, wi united states - Thursday, August 16, 2007 7:16 PM CDT
Hi Trish,
I just love the new videos. So cute. The first one I thought I saw her sign doll. And then on the second one she did it again. I know you are saying and signing baby but I really thought I saw doll! It is though you can actually see the wheels turning in that cute head of hers until she can make her body do what she already knows. So sweet. I love her little noises she makes as well and not to mention seeing her daddy interact with her. He is great!!! Glad to hear the the cath has helped her out so much. We felt the same way after Madisons last open heart too.
Take care and continue to enjoy that cute little girl of yours.
Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Wednesday, August 15, 2007 11:15 PM CDT
Hi, I have just come back to Makily's website to look at the videos again! Makilys baby is so cute, it is so precious to see her play with it!
You guys as parents are doing an AMAZING job! Your WONDERFUL parents, you are so caring.
I love how you let Makily choose her own baby doll in the shop.
The way you interact with her is amazing, and the care and attention you give her is astounding. Your give her so much encouragment and it is WONDERFUL to see.
Lucy
Dunedin, New Zealand - Monday, August 13, 2007 11:30 PM CDT
Thanks for the update!!!! I am sooo happy that Makily is doing better with the tummy thing. I absolutely loved the videos. OMG, she is amazing!!! Lots of Love, Janie
Janie Tucker
- Monday, August 13, 2007 9:18 PM CDT
Makily is so cute! I love the new videos.
Does she have her ears pierced? It looks like it in the video.
Lucy
Dunedin, - Monday, August 13, 2007 3:42 PM CDT
Trish,
I am so sorry to hear what happend with Makily and her mickey button!!! It has been one of my fears since Riley got her tube and any time that I have mentioned this to someone with a child with a button, they have told me that at some point, Riley WILL pull her button out- it is inevitable! So please remember that things happen and sooner or later she will pull it out too- let's just all say some prayers that it doesn't ever happen again!
Aaron and I just got done watching that amazing video of Makily walking and we just sat in awe of her. All we can do is pray that we are able to help Riley get to a point where she can sit up or stand and then maybe some day even be able to make our own home video of Riley and her first steps. For now, we are just trying to take it day by day, and we are still working on bettering her head control and keeping her head propped up during tummy time. But needless to say, we are already so darn proud of her!
We are also VERY proud of Makily! And I send you so many hugs to you Trish! As moms, we already have so much going on, and I am sorry that Makily's button coming out had to happen too!
We send you all our love and prayers,
Proud parents to Riley (31 months old, Aicardi Syndrome)
www.caringbridge.com/mn/rileynicolle
The Lignell-Spauldings <aaronandnikki@charter.net>
Farmington, MN - Saturday, August 11, 2007 9:48 PM CDT
Hi Trish Im sorry to hear you guys had such a rough day. Im sure it was more painful for you than it was for Makily. Molly has had to have silver nitrate on her g tube site for tissue protruding. I had no idea it was painful for them. Molly can't cry or let me know she is hurting. How sad now if she has to have it done again I will worry about it hurting. Give Makily kisses from us.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, KY usa - Saturday, August 11, 2007 11:48 AM CDT
Praying for you!
The Lord is gracious and compassionate, slow to anger and rich in love. The Lord is near to all who call on him. Psalm 145:8, 18
www.caringbridge.org/visit/johnshattuck
Elaine/Angel_Wings <eshattuck1@cox.net>
- Monday, August 6, 2007 7:08 PM CDT
So sorry to hear that you had such a rough day. How awful for you both. But Makily is such a trooper (and so are you mom!) Hang in there!
Hugs,
Stephanie
www.caringbridge.org/visit/babybrendan
Stephanie Johnson <sjncj1994@yahoo.com>
TX - Monday, August 6, 2007 3:50 AM CDT
Trish,
I wish I could tell you that I haven't done such a thing to my girls but in fact it has happened to both of them and not just once. I always felt so bad so I know that you have to feel horrible. But we can't beat ourselves up forever. Maybe this will take care of all the leaking :-)
I remember when they cauterized Jordan's granduloma one time and the stuff leaked onto her tummy. She had a huge burn on her tummy. I took pictures to show the doctor the next time we went in. They were horrible! But like Makily, shortly after the incident she was smiling and playing. These kids are great and somehow they manage to survive their parents mess ups. Keep your chin up. She loves the momma!
Take care,
Pam and Madison
www.caringbridge.org/visit/madison
Pam <aquanutt1@bellsouth.net>
- Sunday, August 5, 2007 11:03 PM CDT
She is such a brave little girl. If that was me, I would have carried on about it for ever. I'm a baby about pain.
give her hugs from her PRS buddie Nathan
www.caringbridge.org/visit/nateypatey
Michele
Michele <shel4974@hotmail.com>
Layton, Ut USA - Friday, August 3, 2007 12:05 AM CDT
Makily is indeed a strong little girl. We could all learn a lesson from her. What is done is done and to get over it and move on and enjoy life and the moment we are given. She is so special in so many ways. I am very proud of her today and always.
Aunt Tammy <tamarac123@msn.com>
Ocala, Fl Marion - Friday, August 3, 2007 11:22 AM CDT
Thanks for the update. Hope the healing continues. Love you, J
Janie Tucker <janietucker@yahoo.com>
- Friday, August 3, 2007 9:07 AM CDT
Thank you for sharing your story, Makily's story. She is so blessed to have you. I have a child with different special needs, but, I have been touched by your story. God is blessing you so much. Your video is amazing. Thank you!
Shan <psalm333@comcast.net>
Sultan, WA USA - Friday, August 3, 2007 1:47 AM CDT
Makily is soooooo precious. I check in on her frequently.
So sorry you had to go thru those problems with the g-tube. My son, Morgan, has a g-tube and he has frequent granulation tissue build up. The drs. have me cauterize it with silver nitrate at home. I just hate doing it because he cries so much. Amazingly, like Makily, he will cry for awhile, fall asleep for a while, and then wake up like nothing ever happened. They are such troopers, aren't they?!
I hope things go better for you now.
Holly & Morgan www.caringbridge.org/visit/morganmccormick
Holly <hmmmcormick@yahoo.com>
DSM, IA - Thursday, August 2, 2007 6:45 PM CDT
I am sorry that you guys went through that. I hope your are both feeling better. Makily is a tough kid. I hope she gets everything she needs. Bless her.
Scott <ewingssarcoma@gmail.org>
Appleton, Wi US - Thursday, August 2, 2007 11:29 AM CDT
I'm pretty sure special children are here to amaze us! And make us the happiest people alive while they bless our days! Making even the simple things amazing. You make so many people smile, keep it up swee girl!
Hugs, Marcie
www.caringbridge.org/visit/collinbryan
Marcie <formanm@hotmail.com>
- Thursday, August 2, 2007 8:47 AM CDT
Makily is so cute. She has the sweetest little smile and face. I hope she is doing well and is happy. You and her both deserve to be. I love the pictures and videos on her page. They just make you feel happy when you look at them. Makily has a great smile and laugh. Give her big hug. She is a perfect and beautiful little girl. :)
Jenny <Jassie26@hotmail.com>
Madison, Wi US - Wednesday, August 1, 2007 0:29 AM CDT
The last message posted to your site (from Natalee - age 7) was from my daughter. She has had a rough time lately. My sister's daughter was diagnosed with trisomy 18 at 20 weeks gestation. The doctors encouraged her to terminate the pregnancy, but my sister refused, and let Marlee's fate lie in God's Hands. She carried Marlee for another 16 weeks, knowing what the possible outcome would be, but thankful for every moment that she had with her daughter. Feeling her kicks and her hiccups, knowing that she was strong and alive inside of her, and her faith in God, gave my sister the strength that she needed to make it through such a difficult time. Marlee was born on June 15, 2007 at 36 weeks gestation. She died approximately 30 minutes prior to delivery due to a prolapsed cord. Marlee came into this world and left this world exactly the way that God intended for her to.
Your story and videos are so beautiful. Your faith in God is also so encouraging. My daughter has had a very tough time with losing Marlee. I also lost a son late in pregnancy when my daughter was just a year old, but this has always weighed heavy on her heart as well. It is so difficult to explain these things to children. She has found great comfort in Makily's story. She says "See mommy, babies can make it no matter what the doctors say, can't they."
I made a video for my sister, entitled "Into the Arms of God" and posted it on youtube as well. I also am working on a website for her. The site is up and running, but is a work in progress. I put a guest book on the site, and my sister checks it regularly. Please visit Marlee's site, I know my sister would love hearing from you. The site can be accessed at www.marleejonell.com. Thank you so much for sharing your daughter with the world. She has touched many hearts, as I am sure you know. She is an inspiration! God Bless you all.
Bobbie J. Miller, PA-C <bnbmiller3@yahoo.com>
Newton, IL US - Tuesday, July 31, 2007 11:42 PM CDT
your daghter is so cute and my baby cousin died 30 minutes before birth im big cousin natalee. go to (www.marlee jonell.com)natalee age 7.
natalee <natalee@webkins.com>
Newton, il america - Tuesday, July 31, 2007 11:25 PM CDT
your daghter is so cute and my baby cousin died 30 minutes before birth im big cousin natalee. go to (www.marlee jonell.com)natalee age 7.
natalee <natalee@webkins.com>
Newton, il america - Tuesday, July 31, 2007 11:24 PM CDT
Thinking of you today!
But from everlasting to everlasting the Lord's love is with those who fear him. Psalm 103:17
Elaine/Angel_WIngs <eshattuck1@cox.net>
- Monday, July 30, 2007 1:32 PM CDT
My thoughts and prayers are with you.
Psalm 31:24
Be strong and take heart,
all you who hope in the LORD.
Elaine/Angel_Wings <eshattuck1@cox.net>
- Sunday, July 29, 2007 3:14 PM CDT
I knew she'd be awesome. Hard not ta with a mum like u!
Hugs....
Stephanie St-Pierre <steph.stpierre@gmail.com>
- Wednesday, July 25, 2007 7:11 PM CDT
Thank goodness it all went well. I had a feeling it would:) Keep up the positive attitude it seems to take you far:) Have a great day!
Hugs, Marcie
www.caringbridge.org/visit/collinbryan
Marcie <formanm@hotmail.com>
- Wednesday, July 25, 2007 8:28 AM CDT
your daughter is so strong and courages. she is an insperation to me. until now i have always thought that my life was so bad. my mother was murdered in her home at the hands of someone we knew and it is hard for me to deal with but now i know that it could be much worse. i look up to this girl and ever time i think of how bad my life is i remember her and you guys for being so strong and she is truly a miricle to us all. thank you mikiley for coming into this world. keep fighting. you are my hero forever.
nicole zins <nicscoob22@yahoo.com>
bay, mi united states - Monday, July 23, 2007 8:35 PM CDT
I just came across your daughter's amazing journey and am so touched by her strength and courage . What a beautiful girl with such a sweet soul and determination that is awe inspiring . I will be keeping you all in my thoughts and prayers .
Eli & Fletcher
Michele
- Monday, July 23, 2007 9:05 AM CDT
What an amazingly srong little girl!!! I am so darn proud of her- and I am also proud of mom and dad and the "entourage" for being so strong right along with her. Surgery is one of the scariest things that we can watch our child go through...leaving our most precious love in the hands of others- even though they are skilled and knowledgeable surgeons... I watched the video and your little princess did not show one sign of weakness, saddness, or fear...she is so amazing! I have said so many prayers for you all and I am so over joyed that everything went so well. You are so right when you say that she was meant to be at that hospital with that doctor- it may have been a very trying and scarey way to end up changing doctors, but in the end, things couldn't have worked out better!
I have to say that when I say Makily in her car seat and she was crossing her legs, and left one crossed over her other knee, it made me just giggle right into my heart- Riley has started doing that while sitting in her tumble forms chair and I just think it is the cutest thing! I have taken so many pictures of her just sitting in her chair kicking back with her leg up - looks like she is saying, "What's up? Me? Oh, I am just hanging out!"
I think of you guys all the time and I check in daily to see how you are all doing and to see how sweet Makily is doing. She gives me so much hope for Riley. Even though their struggles are very different, they both have to work so much harder to learn things that so many other kids don't even have to think about and are able to do...
I send you all our love and will email soon to visit!
Please give Makily BIG HUGS AND KISSES from her #1 fam club in Minnesota!
With our love,
Nikki, Aaron, and Riley (Aicardi Syndrome, 31 months old)
www.caringbridge.com/mn/rileynicolle
The Lignell-Spauldings <aaronandnikki@charter.net>
Farmington, MN - Sunday, July 22, 2007 0:21 AM CDT
Wow...what an angel Makily is....so glad her surgery went well...
www.caringbridge.org/visit/kumakajensen
tracy <fourjensenboyz@aol.com>
chino hills, ca 91709 - Wednesday, July 18, 2007 9:45 PM CDT
Glad to hear things went so well for Makily! She;s such a trooper! What a big girl! I hope you all are having some good days!
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Wednesday, July 18, 2007 8:12 PM CDT
Thinking of you and hope you have a great day!
Elaine/Angel_WIngs <eshattuck1@cox.net>
- Wednesday, July 18, 2007 12:48 AM CDT
I am so glad she did so well. Prayer realy does work!
God bless you guys...
Michele and Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Wednesday, July 18, 2007 8:52 AM CDT
Thank you for the updates! Even though I have never met your precious angel in person, I feel apart of her life. I am crying tears of joy right now for you all. I know its been rough, now you can relax a bit. Hope you and Allen have fantastic birthdays! I can't think of a better present than Makily's terrific news. Love you all!
Janie
Crawfordville, Fl USA - Wednesday, July 18, 2007 8:23 AM CDT
I love getting good news....tears of JOY for all! Big hugs for you and Makily!
Melinda Taylor <melinda_taylor@comcast.net>
Lancaster, pa - Wednesday, July 18, 2007 5:37 AM CDT
God Bless Makily! She is in the best hands possible...HIS!
Carolyn Jacob <cjphotohound@yahoo.com>
Massillon, OH USA - Tuesday, July 17, 2007 4:17 PM CDT
praise be to GOD honey! He is soo faithful!
I'm thrilled to hear about Makily's dr. That is SO GOD.
Andrea and Luke <andreas7@cebridge.net>
Denton, Tx USA - Monday, July 16, 2007 11:00 PM CDT
Praying that all is well and you are just busy settling the little princess back into her own castle! Glad to hear that she did so well and surgery is not something you have to face.
Love,
Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Monday, July 16, 2007 9:22 PM CDT
We are so glad that the little angel came thru ok!!
Sending hugs and kisses your way!
Kristy - David - Katrina <kkowalczik@taylorbean.com>
Ocala, fl US - Monday, July 16, 2007 12:43 AM CDT
woo hooo...
were still praying....hope she can come home soon and heals fast!
Michele and your PRS buddie Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Monday, July 16, 2007 12:17 AM CDT
That is so wonderful that Makily didn't have to have surgery! What a blessing. The new pictures of her are adorable! Such a sweet little girl!
http://caringbridge.org/visit/babybrendan
Stephanie Johnson <sjncj1994@yahoo.com>
Merkel, TX - Monday, July 16, 2007 3:22 AM CDT
We're so happy to hear that the procedure went well and to know that Makily was smiling afterwards is absolutely beautiful! We love you sweetie. stay strong!
www.caringbridge.org/visit/babyelise
Kerri Rochman <rochman6@yahoo.com>
- Sunday, July 15, 2007 10:47 PM CDT
Makily, we are so glad that your procedure went soo well.
We love you and we are sorry that we missed you at the hospital Friday! Can't wait to see you soon!
Love,
Carrie, Sean, Brennan, Sarah, and Logan
www.caringbridge.org/visit/brennanhammer
Carrie <CSHammer1234@aol.com>
Ocala, FL - Sunday, July 15, 2007 4:07 PM CDT
Hello, thinking of you and praying you are feeling good. I hope everything went good.
Elaine/Angel_Wings <eshattuck1@cox.net>
- Sunday, July 15, 2007 3:03 AM CDT
I'm so glad everything went well for Makily and that the doctor was able to patch the holes on the second try. Ava had what the cardiologist here in town called "the swiss cheese effect" by echo too. Ava is on 3/4 of a baby aspirin a day too. I know that is such a relief for you all to have this behind you. Have a great weekend!!
Emily, Mom to Ava-ES and Skylar
Emily Gray <EGGray109@aol.com>
Satsuma, AL USA - Sunday, July 15, 2007 0:54 AM CDT
Thanking God! So happy for you all.
Love, Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Saturday, July 14, 2007 10:01 PM CDT
Woo Hoo!! I am sooo happy for everybody. Love you!
Janie Tucker
- Saturday, July 14, 2007 6:32 PM CDT
I am so happy for you all!!!!
That is such great news!
God is so amazing!
I wish Makily a speedy recovery.
Have a wonderful weekend!
Jennifer Sundt <maddyjax@msn.com>
Elk River, m - Saturday, July 14, 2007 4:40 PM CDT
Hurray! Yay! Yee-hah! Thanks, Deb, for the update and the great news. Thanks, God, for bringing Makily safely through all her procedures today, and for arranging the details as You did.
Carolyn (Elijah's Grandma from the PRS list)
Hockinson, WA - Friday, July 13, 2007 11:00 PM CDT
Best recovery wishes for your lil princess. Hope she gets thru this fast and with flying colors.
Dallys (from the old mommy hangout now at mommyhaven) <oozdqt@hotmail.com>
edmonton, ab canada - Friday, July 13, 2007 10:23 PM CDT
Princess should be in recovery or recovering now if I read the blog correctly. Regardless....shouts and prayers to the Lord for a speedy recovery. We think she is so so so so cute!! My daughter Kennedy was recently diagnosed with bone cancer, she is 10. We will have almost 9 mo. chemo and rib removal. Yuck please visit our site and pray for Kennedy. www.caringbridge.org/visit/kennedy1
Stacy Moriarty <stacykay68@comcast.net>
Aurora, co usa - Friday, July 13, 2007 6:24 PM CDT
Just stopping by to let you know that I am thinking about you all and praying for Makily. Can't wait for an update!
Love, Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Friday, July 13, 2007 4:03 PM CDT
Praying so hard little sweetie. Been thinking of you, mommy and daddy all morning.
Love you
xoxoxoxoxoxox
Kristin & Kourtney <kkrad702@aol.com>
N.J. USA - Friday, July 13, 2007 10:29 AM CDT
praying........
Michele and Nathan <shel4974@hotmail.com>
Layton, Ut USA - Friday, July 13, 2007 10:22 AM CDT
HUGS ON THE HEART SURGERY THIS MORNING, I PRAY ALL GOES WELL. ARNOLD PALMER IS A GOOD HOSPITAL WITH CARING PEOPLE.
YOUR FAMILY WILL BE ON MY MIND TODAY.
Many Hugs, Faith & Antonio
http://www.caringbridge.org/visit/antonioherrera
FAITH P2P
ORLANDO, FL 32822 - Friday, July 13, 2007 9:39 AM CDT
I knew from the day I read about her on the mommy site there was something special about her, My blessings are with her and the family, May god watch over you all thorough this this troubled time and may this be the surgery that brings new life..
Kim <imncbound@yahoo.com>
Rocky Mount, NC USA - Friday, July 13, 2007 8:25 AM CDT
Praying for you today more than ever sweet girl.
Hugs, Marcie
www.caringbridge.org/visit/collinbryan
Marcie <formanm@hotmail.com>
- Friday, July 13, 2007 8:24 AM CDT
Hi Trish and Makily! I will pray for your surgery tomorrow- God bless you and guide your surgeons' hands.
www.caringbridge.org/visit/eithenerosehilliard
Jessica Hilliard
MA - Thursday, July 12, 2007 7:46 PM CDT
Trish,
I've been praying for you and Allen and Makily all week, and will be tomorrow as well. May Jesus give you his peace!
Lucy S. R. Austen (mom to Elijah, PRS)
- Thursday, July 12, 2007 7:01 PM CDT
We will be praying for safe procedures tomorrow. I hope all goes well and her recovery is smooth. She's a fighter and will get through this! Hang in there.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Thursday, July 12, 2007 6:55 PM CDT
Hey! Lots of prayers coming your way!!!!!
We are going to be downstairs in the classroons (by the cafeteria) at APH Monday for some pictures they are taking of cancer patients and their famillies. I think we are going to try and get there around 10. So if she is doing well and you want to try and find us...... I will be the crazy lady with three kids. :) :)
Dawn from p-2-p <Flipps525@aol.com>
Orlando, FL - Thursday, July 12, 2007 5:27 PM CDT
Makily, I tried to light a candle for you, I think I did it correctly but if not I wanted to let you know I am praying for you, your Mommy & Daddy and your entire family! You are a fighter!!
Gina Roberts <bgroberts01@msn.com>
Akron, OH USA - Thursday, July 12, 2007 11:48 AM CDT
We are praying for you guys for tomorrows procedures. I will be thinking about you all day and checking back for updates. I know she will do just fine! HE is in controll!
Michele and your PRS buddie Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut usa - Thursday, July 12, 2007 11:41 AM CDT
I hope everything goes wonderful for your family and that sweet baby girl....
Sara <saralynnwalls@yahoo.com>
Mt Juliet, tn - Thursday, July 12, 2007 10:23 AM CDT
We are storming the heavens with prayers for you sweet girl and that Mommy and Daddy will feel God's arms around them during this time. You are amzing sweetie!
Cori (Kira and Dylan's Mommy from P2P) <corivk@charter.net>
Madison, WI USA - Thursday, July 12, 2007 8:54 AM CDT
I lit a bunch of candles this morning for you sweet girl and will light more for you tomorrow.... My goal was to have the whole page lit up for you however one would burn out every time I lit one it seemed...
hugs,Marcie
Marcie <formanm@hotmail.com>
- Thursday, July 12, 2007 8:31 AM CDT
Hi gorgeous Makily, I love your turtle no wonder he is your favorite. Your Mommy always makes the most beautiful videos of you and you melt my heart with each picture. I pray that your tests come back normal Friday and that the lord will hold Mommy and Daddy's hand through every nerve racking moment. You are such a blessing to so many and please know how loved you are even to those who have never met you. Big hugs and kisses.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, KY - Thursday, July 12, 2007 0:18 AM CDT
Sweet girl you are loved so much and by so many.
You are growing so much and so beautifully.
You and your mommy and daddy are always in our prayers and will be even more so on Friday. Makily we love you and know you will do great this Friday!
Liz from CAB <liz@rockinsavings.com>
LaGrangeville, NY USA - Wednesday, July 11, 2007 10:46 PM CDT
Sending lots of hugs and prayers!!!!
Julia Curosh <JCxKYgal@aol.com>
Portage, IN United States - Wednesday, July 11, 2007 10:20 PM CDT
Praying for you sweet Makily! You will do fine!! Go easy on Mommy and Daddy... they love you so... You will be in my thoughts and prayers on Friday.
www.knopfcrew.blogspot.com
Vicki Knopf <v.knopf@comcast.net>
Salem, CT USA - Wednesday, July 11, 2007 9:52 PM CDT
My thoughts are with you. I have been stopping by for quite some time now and have just been amazed at your little angel. Bonnita sent me an email to remind me about your latest challenge and asked me to light a candle. I lit the candle but I feel certain that Makily has a special angel watching over her.
Ev M <2ev@sympatico.ca>
Woodstock, ON Canada - Wednesday, July 11, 2007 8:36 PM CDT
A prayer request was left for Makily in our guestbook. Please know we are keeping your family in our prayers and are asking others to do the same.
My two little miracle nephews, Asher and ^Jacob^:
www.caringbridge.org/visit/asherandjacob
For Prayer Support:
www.ashersfriends.blogspot.com
Laura Lynn <laurainsem@yahoo.com>
Hollidaysburg, Pa - Wednesday, July 11, 2007 7:01 PM CDT
Praying for you sweet girl as your "BIG" day comes closer.
Hugs, Marcie
www.caringbridge.org/visit/collinbryan
Marcie <formanm@hotmail.com>
- Wednesday, July 11, 2007 7:48 AM CDT
Makily has overcome so much. I can't believe how much stronger she has become. I found your page a year ago. She is so different now. What a little fighter you have. Congrats to you all. Makily is a wonderful and unique little girl. Stay strong. :)
Jenny <jassie26@hotmail.com>
Madison, Wi US - Saturday, July 7, 2007 11:16 PM CDT
Thinking of you and hope you have a good weekend.
Elaine/Angel_Wings <eshattuck1@cox.net>
- Friday, July 6, 2007 12:57 AM CDT
Thank you for sharing the beautiful pictures of your princess! Something about her just brings a smile to my face:) Hope you have a great weekend.
Hugs, Marcie
www.caringbridge.org/visit/collinbryan
Marcie <formanm@hotmail.com>
- Friday, July 6, 2007 8:14 AM CDT
Hope you had a great Fourth sweet girl.
Hugs, Marcie
www.caringbridge.org/visit/collinbryan
Marcie <formanm@hotmail.com>
- Thursday, July 5, 2007 6:52 AM CDT
Thinking of you and hoping you have a great 4th of July.
Elaine/Angel Wings www.caringbridge.org/visit/johnshattuck <eshattuck1@cox.net>
- Wednesday, July 4, 2007 2:59 PM CDT
Happy Fourth guys! We all lit a candle for Makily- and we know that God will be watching over you guys!
The Teals <Stage845@yahoo.com>
- Wednesday, July 4, 2007 11:10 AM CDT
Happy Fourth Guys!
Brennan sends huge kisses to his beautiful princess!
Trish, don't worry about the surgery because God will have his hands on her heart the entire time! We love you!
Carrie and Brennan:)
www.carringbridge.org/visit/brennanhammer
Carrie Hammer <CSHammer1234@aol.com>
Ocala, FL USA - Wednesday, July 4, 2007 9:30 AM CDT
Have an amazing Fourth!!!
Hugs, Marcie
www.caringbricge.org/visit/collinbryan
Marcie <formanm@hotmail.com>
- Tuesday, July 3, 2007 9:11 AM CDT
Oh my gosh that poem gave me chills and made me cry... I love it!
I am so happy Makily is doing so well. My youngest is three and he has no medical problems and he is 26 lbs... Makily is bigger than him!!! You go Makily... Keep up that good work!
Michele and Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Monday, July 2, 2007 11:15 AM CDT
Good morning beautiful girl I hope you had an amazing weekend. Have a great day sweet pea.
((Hugs)) Marcie
www.caringbridge.org/visit/collinbryan
P.S I was wondering where you found the explination of her ASD my son also has mutiple heart defects and I could not believe how easy that was to understand... Maybe you could e-mail me if you have time thank you so much.
Marcie <formanm@ hotmail.com>
- Monday, July 2, 2007 8:33 AM CDT
Hello Makily my name is Trish and i am a prayer
warrior with Angel_Wings and this is my first visit to
your website but i promise to return very soon to check
on you and we will be holding you close in our prayers.
Trisg/Angel_Wings(http://groups.yahoo.com/group/Angel_Wings) <Boyerangeltrish@aol.com>
Kingston, TN USA - Sunday, July 1, 2007 12:43 AM CDT
Hi Makily and family,
I hope you are all doing well. I will be praying for your upcoming heart procedures.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Saturday, June 30, 2007 11:48 PM CDT
Makily has come a very long way. She makes everyone proud. I'll be praying for her. She is a very unique and cute little girl. Your lucky to have her. :) She is amazing.
Jenny S <Jassie26@hotmail.com>
Madison, WI United States - Wednesday, June 27, 2007 11:05 PM CDT
I LOVED the video!!! When my day is going blaggh and I think I just can't go anymore, I pull up your site and am reminded of both you and Makily. Way to go on the snuggles! Please tell me Allen was video taping the car scene if you were driving??? LOL!
Janie <janietucker@yahoo.com>
Crawfordville, - Wednesday, June 27, 2007 6:38 AM CDT
Trish,
Any procedure or surgery where I have had to "send" Gabby away with the doctors is the worst thing I have experienced in my whole life (even if it IS for her own good). My heart aches with you. I understand your fears... but Makily is a fighter! ..this won't phase her...she'll be back to the cute, cuddly Makily in NO TIME! :) Just imagine that cute little smile after the procedure is all over with and she finally wakes up and looks at her mommy and daddy...you'll be amazed at her strength and her joyful nature. You will be so proud of her (yet again!) I will be praying for peace of mind for you and for Allen...and most importantly I will be praying that everything goes smoothly for Makily -- the less invasive the better -- and also praying you will be in and out of the hospital in a flash! I will also pray that the docs take care when intubating and extubating Makily! This is all so hard on everyone! I will also be praying for everyone in your family -- if it is anything like mine -- when one family member hurts they all hurt! Take care and know that you are a great mom! Give Makily a hug from us in the hospital up here in PA!! :)
Melinda Taylor
Lancaster, pa usa - Tuesday, June 26, 2007 10:21 PM CDT
Trish,
You are amazing! Makily is such a blessing. I LOVE the video of her boogying in the car. I really miss seeing you both at our office. I'm due for another Makily snuggle soon. You guys will have to come over to play sometime.
Jessica <jessica.labagh@cox.net>
Ocala, FL USA - Monday, June 25, 2007 8:08 PM CDT
omg. that new video is incredible. it's so amazing to see how much she's progressing and i've only been gone a couple of weeks!!!! can't wait to see her and you guys again! but mainly her!
tara
- Monday, June 25, 2007 7:35 PM CDT
Hi guys! I finally signed in again :) The website is beautiful!! Addison was very excited to watch Makily (and herself) on the computer!!
Jenni
- Sunday, June 24, 2007 11:51 PM CDT
YeaH!!! So Happy to see her progress!!!
This is awsome,
What a sweetie..
with Gods Love and Prayers
www.caringbridge.org/tn/kayla
www.caringbridge.org/tn/mimmie
Creative Spiritz
April & Angel Mikayla and Family <babymsmom04@yahoo.com>
TN USA - Sunday, June 24, 2007 8:32 PM CDT
Your daughter is absolutely beautiful! Thank you for sharing her story and posting the videos. I was really touched by the quote "Sometimes God sends us what we need, not necessarily what we want." Most days I know this, but today I needed that reminder. Thank you!
www.caringbridge.org/visit/babybrendan
Stephanie Johnson <sjncj1994@yahoo.com>
Merkel, TX - Sunday, June 24, 2007 1:36 AM CDT
Makily is such a beautiful little girl. You guys are always in my thoughts and prayers. I am praying for strength and comfort for you Trish and for God to keep his healing hands on Makily through her surgery.
Amanda(P2P)and Amelia
www.caringbridge.org/visit/ameliajean
Amanda Bogard <nabogard@sbcglobal.net>
- Saturday, June 23, 2007 1:36 PM CDT
I have always had good luck on Friday the 13th's....
I know you guys will too!
Michele and Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel974@hotmail.com>
Layton, Ut USA - Thursday, June 21, 2007 1:57 PM CDT
She will be in my prayers.
Tina & Angel Lance <lancejrmommy@comcast.net>
- Wednesday, June 20, 2007 11:19 AM CDT
Hi, Trish--
I have Makily's surgery date on my calendar (it's the same week as Elijah's next surgery) and will be praying for you three and the surgery teams as well between now and then. May the peace of God, which surpasses all comprehension, guard your hearts and your minds in Christ Jesus.
Carolyn S-R (Elijah's Grandma from the PRS list)
Hockinson, WA USA - Tuesday, June 19, 2007 9:39 PM CDT
ALready starting the prayers for Makily's Surgery. My Sunday School class will be praying for her too! You both are troopers! I hope and Pray the result of this will be a fresh new start for you all.
Shayna (From CAB) <shaynag@gmail.com>
Winston Salem, NC US - Tuesday, June 19, 2007 12:50 AM CDT
We just dropped by to check on you today.
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Monday, June 18, 2007 11:11 AM CDT
Happy Father's Day, Allen! Your daughter and your family are beautiful.
Lucy
- Sunday, June 17, 2007 12:47 AM CDT
I have tears streaming down my face right now - not out of pity, not out of sadness - but out of total awe, respect and amazement of such a strong soul :-)
Would you believe I found your page by accident, but after reading and viewing the videos I am not so sure that a divine universal hand was not at work somewhere.
Please give Makily a hug all the way from the bottom of New Zealand from me and my own family.
You are all in my thoughts.
Blessings
Sarah & Kaleb (son, age 2)
Sarah Hopkins <moonmistlady@hotmail.com>
Invercargill, New Zealand - Sunday, June 17, 2007 5:40 AM CDT
I'm sending a big hug and kiss your way! Good luck and God Bless You all during the surgery. Love, Janie
Janie Tucker <janietucker@yahoo.com>
- Saturday, June 16, 2007 5:26 PM CDT
Praying for your little girl.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Friday, June 15, 2007 4:32 PM CDT
Makily,We just wanted to say a quick hello and hope you're having a wonderful summer.Praying your heart surgery goes well.
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Friday, June 15, 2007 1:19 AM CDT
Oh my! How scary for you guys. We will be keeping that cute little doll in our prayers.
Hugs from your PRS buddie Nate!
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Tuesday, June 12, 2007 11:50 AM CDT
just letting you know that i've still been checking up on lil maki-ki. i'll be praying and i know everything will work out, she is such a strong kid!
tara
tampa, fl us - Tuesday, June 12, 2007 10:11 AM CDT
I love the picture of her STANDING!!!!! She is so beautiful. Have a wonderful week and please know that I always think of you all.
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, June 12, 2007 0:02 AM CDT
Who is that big girl standing up and watching TV. Wow she looks great. I know what you mean about the sleeping thing. Madison is still in the livingroom with one or the other of us sleeping just feet away from her. I love the new princess bed! Wow, sleeping all night on her first night. What a girl.
You are just going to love foster care. We did it for a little over 17 years. I was so sad to give up our license. But that was the deal when we took on Madison. I have such wonderful memories! I actually am getting so excited because I have someone who just got in contact with me about a little 27 weeker. She is in the process of trying to adopt him and if it goes well, I am going to get to be his FL mommy. She is from another state and can't stay her while he grows. I can't wait! Like I said, you are going to love it!
Hope you sell your car.
Take care,
Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Sunday, June 10, 2007 7:33 PM CDT
I found your page while looking at a friends and I must say, I added it to my favorites :) I am so drawn to Makily and am not sure why. Yes, her story is interesting, but its more than that. You can watch her take her first steps and boogie in the car to music, and there is just an air about her that makes me curious to see how she is doing at least once a week. Congratulations on all the accompishments!!! Having a disabled child has got to be a toll, but when in Holland... Take care and please know that I am praying for you and your family! And Kudos to you on being published in the paper...
Christina King <kcking_mi@yahoo.com>
Rockwood, MI USA - Thursday, June 7, 2007 7:34 AM CDT
I have followed your journey for a long time now but very rarely sign.
Your little angel is growing so big!!!!
And she is such a cutie.
I really admire you. Your are an awesome mother!
Thanks so much for sharing your story.
God Bless you and your family,
Jennifer
Jennifer Sundt <maddyjax@msn.com >
Elk River , MN - Wednesday, June 6, 2007 1:41 PM CDT
Oh my gosh! I would sleep like a log in that bed too! How cute is that bedroom! It sure fits her to a T.
Hugs from your PRS buddie Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, UT USA - Wednesday, June 6, 2007 10:54 AM CDT
Hi Makily! Greetings from the Philippines! That is a beautiful pink princess bed. I just prayed for you and hope you have a wonderful week!
Rachel www.freewebs.com/heartforthephilippines
- Wednesday, June 6, 2007 7:17 AM CDT
What a beautiful bed that you have. It is surely fit for a princess. I guess Mom and Dad were crowding you out weren't they gorgeous. How exciting!!! Foster parenting is a wondergul thing to do. Mark and I have also considered it but have not made the step into it yet. Big kisses to you Makily.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, Ky - Tuesday, June 5, 2007 8:00 PM CDT
I just wanted to say you have a beautiful daughter and you guys are wonderful parents!! She is amazing!! The determination she had when she was walking (in the video)was enough to take your breath away. Way to go Makily!! Even though this is my first time signing the guestbook I check her website often. She will make a great big sister :)
God Bless
Gina Roberts <bgroberts01@msn.com>
Akron, OH USA - Tuesday, June 5, 2007 9:02 AM CDT
Oh look at that big girl in her own bed! Way to go Makily!!
Julie <JCxKYgal@aol.com>
Portage, IN United States - Monday, June 4, 2007 5:39 PM CDT
I am so happy to hear that you are going through the process for fostering. It is something that Aaron and I have talked about and hope to do someday. Having children is such an amazing experience and you are so right when you say that some people that don't either want kids or don't deserve them, have no problem getting pregnant WAY TOO many times and WAY TOO EASY, and a wonderful mother and woman and your wonderful family have such hard decisions to make in hopes to have more children. I know that you already know this, but God sends these wonderful children to us in SO MANY DIFFERENT ways and situations. I have heard so many times since Riley was born, that God sent her to us because he knew that we would care for her and she needed us. In the past two and a half years, I have really learned that we needed her just as much, if not more than she ever needed or needs us! And just like Makily was given to you because your family wouldn't be complete without her, there is at least one other child (may be even more) that need you and you need them. I know the thought of a child becoming part of your family and then possibly having to leave could be devestating, but any child that becomes part of your family,will ALWAYS be part of your family. Those children need you and you need them! You guys are such a wonderful family! You are going to change the lives of children!! Could there be a better thing!
You are wonderful!
Much love to you all!
Hugs,
Nikki, Aaron, and Riley (29 months old, Aicardi Syndrome)
www.caringbridge.com/mn/rileynicolle
The Lignell Spauldings Riley Nicolle's Site <aaronandnikki@charter.net>
Farmington, MN - Wednesday, May 30, 2007 10:29 PM CDT
Makily,Just driving by to say hi!
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Tuesday, May 29, 2007 1:46 AM CDT
Hi you guys. The nerve of that guy to come in and mess with a sleeping baby! I would have been mad as well. When Madison had hers done there was a lead that was right between her nose and her upper lip. She kept knocking it out everytime she adjusted her paci. I think the guy had to reattach it about 10 times through out the night. Sounds like the results are really good! It is nice to know that she is getting a good nights sleep.
Glad to hear you had a great time of fun while you were there too.
Take care and if you need a lesson on those ponytails just let me know :-)
Pam and Madison
www.caringbridge.org/visit/madison
Pam Miller
- Thursday, May 24, 2007 9:06 PM CDT
Makily is so funny. She is a wonderful child.
Jenny <jassie26@hotmail.com>
- Thursday, May 24, 2007 2:09 PM CDT
Makily is so BEAUTIFUL and full of life! She has two GREAT parents! Everything that both of you are doing are an inspiration to others! Such a very loving family!
Robin MacBlane <robnonair@aol.com>
Ocala, FL USA - Monday, May 21, 2007 4:01 AM CDT
I love watching those first steps. I have seen them several times and can't get enough so precious. I love the crooked pony tails. I can never get Molly's straight either. LoL. We thank of you guys often. Give Makily a kiss for us.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, ky - Sunday, May 20, 2007 5:11 PM CDT
Oh my goodness! That was priceless. I have to say though, you may have a little hoochie on your hands with those legs going like that! LOL!!! The girl's got rhythm. Also, I was looking at your intro picture of her with the "crooked ponytails," she's sitting up without support. Remember when the doctors said that would never happen??? Wow!!! Love you guys!
Janie Tucker <janietucker@yahoo.com>
Crawfordville, FL USA - Sunday, May 20, 2007 8:29 AM CDT
HAHAHA She's got more rythm than me!! She looks awesome!
Jillian <gonnabanmd@sbcglobal.net>
Saginaw, MI USA - Saturday, May 19, 2007 9:27 AM CDT
Thats so funny. I am happy for you guys. Love that dancing. She have funny dance moves. Good luck to you all.
Jenny <jassie26@hotmail.com>
Madison, Wi US - Friday, May 18, 2007 10:42 PM CDT
Wow, Makily is such an amazing little girl! I am so proud of the accomplishments she has acheived. I too will be having a sleep study done to test for anything out of the ordinary with my sleep. I have a Dr. appointment today so I will be going to that later.
Love and hugs,
Sami
Philippians 4:13
Sami <samlloydmiller@gmail.com>
Minnesota United States - Friday, May 18, 2007 7:56 AM CDT
Your mom is right you are such a beauty. You are also an amazing little girl. I know that mommy is bursting with pride for you and your wonderful accomplishments. Stay strong sweetie and keep on blessing everyone with your amazing strength.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, ky - Thursday, May 17, 2007 1:56 PM CDT
Trish, Allen, and Makily,
Congratulations on first steps!!! Makily is a beautiful girl.
Lucy <lucysrausten@hotmail.com>
- Wednesday, May 16, 2007 9:24 PM CDT
Hi - I am mostly a "lurker" on P2P - I am so proud of Makily and I guess there is just no telling HER what she "can't" do!! So beautiful in her pink dress and I have to say, the "wassup" photo made my day!
Heather <halmeter@yahoo.com>
Fairfield County, CT - Wednesday, May 16, 2007 6:16 PM CDT
Those are great pictures. I like the one with her tongue out. Thats funny. She is so beautiful. Your lucky. Congrats on the steps. That was a wonderful video. Hooray for Makily!
Jenny <jassie26@hotmail.com>
Madison, Wi US - Tuesday, May 15, 2007 1:34 AM CDT
You don't know me but I've been praying for our little princess for a while now. There'll be no stopping her now!!!Wonderful first steps!
Pat Johanneck <pamperedpat@hotmail.com>
White Bear Lake, MN USA - Monday, May 14, 2007 10:29 PM CDT
Hi Trish, Allen, and Princess Makily! I showed my class your video today and we cheered as we watched Makily take her steps. Amazing stuff! Some of us grown folks cried, but nevermind all that. Makily, you are my inspiration. I love you and admire you and your family!
Janie Tucker <janietucker@yahoo.com>
- Sunday, May 13, 2007 8:31 AM CDT
Whoo Hoo! Way to GO Makily! I am soooo excited for all of you. Makily truly is a little miracle girl. There are mornings that I get up and doubt myself for being a teacher then I think about precious little kiddos like Makily and remember its definitely worth it! She's my inspiration.
Janie Tucker <janietucker@yahoo.com>
- Sunday, May 13, 2007 8:26 AM CDT
I have been thinking about Makily all day long! I know that our daughters have different syndromes and face some similar and some different challenges all the time, but seeing the progress and all the wonderful things that Makily has accomplished truly gives me so much hope for Riley. Every day I struggle with the feelings that Riley may never walk or even sit up. I try to only think good things and I know that there is always a chance that someday she will be able to do these things, but as a mom, it is really hard to see her trying so hard in therapies and then to go to the grocery store or the mall and see little children half Riley's age running around with such ease. I am so proud of Makily and it has uplifted me any my spirits to see her making such strides...and I know that someday I will be able to email you video of Riley taking her first steps too!
I send you all so much love and will always keep you in my thoughts and prayers and know that Makily has a huge cheering section here in Minnesota!!!
Much love,
Nikki, Aaron, and Riley
The Lignell-Spauldings RILEY NICOLLE'S SITE <aaronandnikki@charter.net>
Farmington, MN - Saturday, May 12, 2007 4:49 AM CDT
I cried while watching the video of Makily walking. The music you used is just perfect. Watching the other child encouraging her just melts my heart. I love it!! Children are such miracles. Keep it up Makily! You are so darn cute and you are making so much progress!!
Stacey Hasse <stacey49686@chartermi.net>
Richmond, VA - Friday, May 11, 2007 8:20 PM CDT
Trish,
I know you have to be so thrilled! What a wonderful work in progress.
Take care,
Pam and Madison
www.caringbridge.org/visit/madison
Pam
- Friday, May 11, 2007 12:39 AM CDT
OH Trish I had to watch it again I am in tears!! I love you both so much and am soo happy to see her accomplish yet another acheivement!!!!
Katrina Blatz
Miamisburg, oh USA - Friday, May 11, 2007 11:51 AM CDT
What a great video. I cried too!
Tina & Angel Lance <lancejrmommy@comcast.net>
- Friday, May 11, 2007 10:08 AM CDT
That video is AWESOME! I have to admit I cried watching it because I am such a sap. LOL.
Holly Dix <holly@prosuregroup.com>
Riverview, FL - Friday, May 11, 2007 9:51 AM CDT
GO MAKILY!!!!!!!!!!! What a cutie!
Terri White <rrtmtl@aol.com>
Seattle, WA USA - Friday, May 11, 2007 9:34 AM CDT
Oh I am so happy... I got Chills reading that. I just know that before you know it you will be chasing her all over the house as she finds different things to get into! Good job Miss Makily!!
hugs to you from your PRS buddie Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Thursday, May 10, 2007 10:27 AM CDT
YAY Makily! Keep up the good work baby!
Vicki Knopf www.theknopfcrew.blogspot.com <v.knopf@comcast.net>
- Wednesday, May 9, 2007 10:06 PM CDT
Thats amazing. Makily is such an inspiration to us all. Bless you all. Sweet little Makily. Sooo cute!
Jenny <jassie26@hotmail.com>
Madison, Wi US - Wednesday, May 9, 2007 8:03 PM CDT
Way to go Makily! You look so pretty in your pictures, and I am so glad to hear you are walking!
Rachel www.freewebs.com/heartforthephilippines
- Tuesday, May 8, 2007 9:33 PM CDT
Makily looks so great!! Congratulations on the good news from doctors and I love that she is standing!!
Stacey, Mom to Emily (balanced translocation of 3;12 chromosomes) <Stacey49686@chartermi.net>
Richmond, VA - Sunday, May 6, 2007 11:25 AM CDT
Makily! I am so proud of you for standing - and with out your peanut ball!!! Amazing! Keep up the good work!!!
Trish,
Your daughter is just too cute! She reminds me of Riley in that I just want to squish her little cheeks! Like I can't get enough of her in the pictures! I wish that we were not so far away- way up here in Minnesota! We will someday get down to Flordia and see Aaron't kids in Deltona and hopefully meet you all too! Riley is on Miralax and it has been such a help in trying to keep her some what regular. Everytime that she was getting constipated, her seizures were out of control so it is a huge weight off our shoulders to be able to take care of it for her. That is so cute about the GI doctor! I love when doctors show such care and show that they are "normal" people too that are not just interested in treating the "patient" but also just truly love kids! Our pediatrician is always running REALLY LATE when we have appointments, but I will never get mad because she is always so attentive and so wonderful and we never feel like she is rushing out the door to get to the next "patient"- so I know that she is always going to take her time with us and does with all of her other kids too. Well, I just wanted to drop a note and let you all know that I am thinking about you all and that I am so proud of Makily for standing like that! Sucha big girl!
Much love from Minnesota!
Nikki, Aaron, and Riley (28 months old, Aicardi Syndrome)
The Lignell-Spauldings RILEY NICOLLE'S SITE <aaronandnikki@charter.net>
Farmington, MN - Friday, May 4, 2007 10:33 PM CDT
I am so inspired by her story. Good luck in all you do!
Amy Stewart <lynnepooh22@yahoo.com>
Murphysboro, IL USA - Wednesday, May 2, 2007 3:18 PM CDT
Trish, you are so right about being blessed. I visit makily often but don't always take time to sign the guestbook. Makily is such a beautiful girl and she melts my heart everytime I look at her. The video is amazing I watched it the other day and I cried, I am so glad you realize how blessed you are, like I said in Molly's journal if only all children can be as loved as Molly and Makily the world would be so much better. I can't stand to think of a child not loved or abandoned because they are sick. I wish I could adopt them all LOL. I seen a picture of Makily somewhere in her litte Nautical outfit, Molly has one just like it only the hat wont fit on her head so I had to make her a pretty bow for it. I pray for you guys often and I am so glad that I found your site.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, Ky - Tuesday, May 1, 2007 3:11 PM CDT
How cute that doctor is. It is so nice when they realy act like they care about your child and not just in a rush to get you out! Miralax is a GOOD thing. My youngest son Cody takes it. It works real well.
Congratulations on standing by yourself Miss Makily! You are such an amazing little girl.
Hugs from your PRS buddie Nathan and his mommy Michele
Michele <shel4974@hotmail.com>
Layton, Ut USA - Tuesday, May 1, 2007 11:53 AM CDT
Makily, I'm soo glad that you are standing like such a big girl!!! WHAT AN ACCOMPLISHMENT!!!
Lots of love,
Carrie :)
Brennan's Mommy
www.caringbridge.org/visit/brennanhammer
Carrie <CSHammer1234@aol.com>
Ocala, FL - Friday, April 27, 2007 1:28 PM CDT
Hi Makily!
WOW I'M SO PROUD OF YOU!!!! What a big girl...standing up with no peanut ball! You are so awesome!
Anyways, I am glad to hear that you ejoy your GI doctor. It's good to have a doctor that you trust and have fun with once in a while. I understand why he had to hold Makily! She's so beautiful! I just love her pretty blonde curly hair.
Love and hugs,
Sami
Philippians 4:13
www.caringbridge.org/visit/sami
Sami <samlloydmiller@gmail.com>
Minnesota United States - Friday, April 27, 2007 12:32 AM CDT
YAY Makily! Great Job standing up!
Glad to hear your appointments went well too! www.theknopfcrew.blogspot.com
Vicki Knopf <v.knopf@comcast.net>
Salem, CT USA - Friday, April 27, 2007 6:32 AM CDT
I just read the latest news! Very positive! Keep it up! You've got LOTS of people praying for you!
Larry Whitler <sirgiant@hotmail.com>
Ocala, FL USA - Friday, April 27, 2007 3:24 AM CDT
Makily!
Man do you rock!!! Soooo glad you are feeling better and are standing like a big girl! Praise God! I check in with you (and your Mom's journal) every once in awhile and am doing the happy dance today! Wooo Hoo!!!!
Hugs and God Bless!
Susan Kirby <susan@electricrose.net>
Putnam Valley, NY USA - Thursday, April 26, 2007 12:05 AM CDT
Yay, Makily! You go, girl! You look great!
Btw, Trish, I called the shop with the obnoxious sign last Friday. We had Elijah that day, so I was only able to call them twice, but talked to a different person each time. The woman I talked to was quite annoyed that someone from Washington State knew and was calling about it! She thought it didn't affect me, but I quoted John Donne to her ("No man is an island"). With the man I talked with, we got into a conversation about a woman he knows who is in a wheelchair and what she would think of their sign. Thanks for letting us know about that situation!
Carolyn (Elijah's Grandma from the PRS list)
Hockinson, WA USA - Wednesday, April 25, 2007 5:50 PM CDT
Yeah. We are so proud of you sweetheart! You are just amazing. Keep up all the good work. You too Mom and Dad!
Hugs from your PRS buddie Nathan.
Michele and Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Wednesday, April 25, 2007 8:38 AM CDT
I know you already know this, but Makily is absolutely precous. You are so blessed
Holly & Morgan <hmmmcormick@yahoo.com>
DSM, IA - Wednesday, April 25, 2007 7:48 AM CDT
Way to go Makily! Standing up AND having a snack. I'm totally impressed with your strength and multi-tasking. ;) ;) So proud of your hard work sweetie.
Renee, Myla, Johnny, & baby Zachary <jrenee@neo.rr.com>
OH USA - Wednesday, April 25, 2007 6:59 AM CDT
What a beautiful montage!!! Makily truly is an angel...such a blessing! I love to see how much she's progressed! Hoorayyyyyyyyyyyy for the standing girl!! She's making it over yet another milestone! What a trooper! Congratulations, and know my thoughts and prayers are always with you all!
Heather Stagmer <sheila1854@aol.com>
Ocala, FL USA - Wednesday, April 25, 2007 6:38 AM CDT
Trish,¡¡¡FELICITACIONES!!! to you, Makily, and her dad because you all have worked so much for this. For sure is time for harvest after so much effort. MARAVILLOSO. Big hug to all of you
Laura Muñoz <lauramuno@hotmail.com>
Santiago, Metrop Chile - Wednesday, April 25, 2007 6:26 AM CDT
Yeah !!!!!
Devin's site <tiredofcancer@yahoo.com>
- Wednesday, April 25, 2007 1:58 AM CDT
Way to go big girl..:)
I love your sweet giggles
Dana And maggie Grace <maggiegrace1@cox.net>
- Tuesday, April 24, 2007 11:40 PM CDT
Trish, that's fabulous!! Hurray, Makily!!! I am so very happy for you all. Thank you, God!!
Lucy S R Austen
- Tuesday, April 24, 2007 10:29 PM CDT
I AM SO FREAKIN' PROUD OF MAKILY!!!! SHE LOOKS SO ADORABLE STANDING UP! yOU HAVE GOT TO BE JUMPING OUT OF YOUR SKIN! I WOULD WANT TO YELL IT FROM THE TOP OF A BUILDING, CALL EVERY ONE THAT I CAN FIND A NUMBER FOR, AND THEN SOME MORE!!!
That is sooooo exicting! We have been working on sittin gup (with assistance) and keeping her head up and straight. Riley is doing sooo great right now! Riley and Makily are sure on a developmental streak! I am so proud of her, I am so proud, you would think she was my daughter!! LOL
Anyways, we send you love and prayers and hugs and lots of excitment and cheers for your standing princess!
I will email you soon! Give that little girl of yours a big hug and kiss from Riley!
With love,
Nikki, Aaron, and Riley (28 months, Aicardi Syndrome)
www.aicardisyndrome.org
RILEY NICOLLE'S SITE
The Lignell-Spauldings RILEY NICOLLE'S SITE <aaronandnikki@charter.net>
Farmington, MN - Tuesday, April 24, 2007 10:03 PM CDT
I have tears in my eyes. She is such a miracle.
She is an inspiration to me, and should be to all.
This little one has been through so much, yet still
holds so much love in her heart. She fights her little
heart out and goes above and beyond every task she's given.
Trish, you have been blessed with a beauitful Earth Angel.
Carlyn <Leedstaylor@gmail.com>
Birmingham, AL - Tuesday, April 24, 2007 9:48 PM CDT
Hi Makily! As I was looking at your picture of you and Brennan, I couldn't help but notice how much you are growing. You are starting to look like a little lady. (You're still just as beautiful as always! Just in a big princess sort of way!) Love YOU!
Janie Tucker
- Sunday, April 22, 2007 8:00 PM CDT
Hi,
I am a Bible College student who has been visiting Makily's site almost daily. Makily is a beautiful, precious little girl who is made in God's image. It can be so frustrating when people who don't understand make ugly jokes like the one you mentioned. I will definitely be in prayer for that situation.
Rachel www.freewebs.com/heartforthephilippines
- Saturday, April 21, 2007 9:11 PM CDT
That is so ridiculous! It is absolutely frusterating to hear that people could find something like this funny. It is one thing to make a joke out of something that someone makes a choice about...but I can'timagine that anyone would choose to be confined to a wheelchair! I have done many stupid things in my life and we joke about them all the time, but to joke or make fun of someone (or a group of people) for being disabled is the most horrific thing ever. Where in the world do they get the nerve?? Well, all I can say, is that I am very lucky and happy that our precious angels were given to us and not to ignorant people like them that obviously could never appreciace such precious children!
We send you guys all of our love and we always stop ing to check on you and we always keep you in our prayers!
Love,
Nikki, Aaron, and Riley (28 months, Aicardi Syndrome)
The Lignell- Spauldings RILEY NICOLLE'S SITE <aaronandnikki@charter.net>
Farmington, MN - Friday, April 20, 2007 10:01 PM CDT
Yay, Trish, for speaking up! That is outrageous. It's too late to call tonight, but I *will* call tomorrow--and we have lots of people at our house (*and* unltd. long distance:-) so we can *all* call! Thanks for letting us know.
Carolyn (Elijah's Grandma from the PRS list)
Hockinson, WA - Thursday, April 19, 2007 10:38 PM CDT
This is a beautiful caringbridge site and a very beautiful & special angel. We wish you the best of health and happiness for years to come!! Like your family we have learned so much from our Gavin it can only make it a better world for us all having such angels around us!!
Cathy & Glen Archer parents of Gavin (emanuel syndrome)
gavinarcher/caringbridge
Cathy Archer <samarchoo@hotmail.com>
Fort Madison, IA USA - Thursday, April 19, 2007 7:54 PM CDT
I am in utter shock! I hope you write a letter to your local paper. I think you said you did. Sorry to hear how d@m* dumb people can be.
Janie Tucker <janietucker@yahoo.com>
Crawfordville, FL 32327 - Wednesday, April 18, 2007 7:38 PM CDT
What a horrible thing for someone to put in front of their business. That is just terrible. I hope maybe someone calls the media on this one . That will stop his business permantently . I wish I had long distance otherwise I would call . But really. How terrible , awful and last of all extrememly tacky .
www.caringbridge.org/visit/margaretreed1
Tracy Reed <spongebobswim76@verizon.net >
Corry, PA 16407 - Wednesday, April 18, 2007 5:44 PM CDT
Trish-
Makily is adorable in her birthday pictures. It's very nice to see that your family has such a great support system, and everyone prays for you. I visit often, and cry every time! Happy Belated B-day, Makily!
Jennie Briscoe, mom to Hailey Garland, PT22 <littlebrisc@charter.net>
Greenville, Mi USA - Wednesday, April 18, 2007 1:19 PM CDT
Hi,
Just stopping by for a quick visit. The pictures of Makily are awesome! It's really amazing the way the pictures captured her! Wow. I have a CB page, I decided I miss CB too much and I don't care what the mean people think. So please visit my site.
Love and hugs,
Sami
www.caringbridge.org/visit/sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Monday, April 16, 2007 8:02 AM CDT
Yay! I'm soooo glad you are feeling better. You looked absolutely stunning in your birthday pictures. Love you!
Janie Tucker <janietucker@yahoo.com>
Crawfordville, FL USA - Sunday, April 15, 2007 8:46 PM CDT
Hi Honeys! I love to stop by here and read your little space on the net. You know I love you Guys and am so glad that you are part of my life!!
Marnie the Great :) <Marnieson2@yahoo.com>
Some where out there..., CA - Friday, April 13, 2007 9:10 PM CDT
Hi sweet Makily,
I am so glad you are doing okay. Too bad to hear that you are still getting over all that yucky junk. I am glad things went well at the meeting. It sounds like the people there really care about Makily and that is a really good thing. As for me, I am doing okay. I have been feeling pretty good the past few days but today has to probably be the best day of all. I work and I SO enjoy it.
Love and hugs,
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Friday, April 13, 2007 2:09 PM CDT
I'm so glad Makily is doing better and Happy belated 3rd Birthday.
Kendra
- Thursday, April 12, 2007 0:24 AM CDT
Sorry this is late but...HAPPY BIRTHDAY SWEET ANGEL!! I love the montage. As usual, you had me in tears!
Allison's Mommy
- Tuesday, April 10, 2007 7:27 PM CDT
What wonderful news! Hooray for Makily. She is so cute in bunny ears. I hope you and her had a great Easter. :) Love the pictures!
Jenny
- Tuesday, April 10, 2007 11:24 AM CDT
YOUR BABY IS SO ADORABLE! I LOVED READING AND WATCHING HER STORY, YOU DID A GREAT JOB INCORPORATING LOTS AND LOTS OF DETAILS. AND JOURNALING ALOT ALSO GIVES EVERYONE A GOOD IDEA OF ALL YOUR UPS & DOWNS.
MIKALY IS SO TOTALLY GORGOUS! I LOVE HER BIG BRIGHT EYES, AND WHO COULDNT LOVE THAT SMILE!
YOUR FAMILY IS IN MY PRAYERS TO KEEP THE SMILES COMING!
WENDY <wen25dyy@centurytel.net>
AL - Tuesday, April 10, 2007 1:07 AM CDT
Dear Caldwell family,
I am so thankful that your precious princess is recovering so quickly from her pneumonia. YEAH GOD!! Prayers have surely been answered.
Bethany has surgery on Friday the 13th at 1pm to remove some titanium that is causing problems in her face and to do an exploratory tympanotomy (with hopes of restoring hearing in her left ear). We are asking that God would release His power in her life and would comfort, assure, and heal her. He's more than able!!
Blessings to you,
The Pearsons
Sharon Pearson www.caringbridge.org/visit/bethanyp <pearsons@usfamily.net>
Wyoming, MN - Monday, April 9, 2007 5:37 PM CDT
I hope your family had a wonderful Easter, I'm sorry Makily has pneumonia. She will be in my thoughts and prayers. I saw your video for the first time, thank you so much for putting things into perspective for me. I will remember your words and video and make the most of everyday I have with my children. God bless your hearts, Makily is absolutely a miracle and a blessing to the world.
Summer Faria
Pearl City, HI U.S. - Monday, April 9, 2007 12:01 AM CDT
Trish,
I'm so sorry that Makily is battling pneumonia too. We are right there with you. Jayden just got discharged from the hospital today after being admitted Friday night for pneumonia. He had 2 rounds of IV Rocephin and now we are home on G-tube Augmentin and Orapred. I hope Makily's clears up just as soon as Jayden's does. Hugs.
Love,
Vicki Fields (Jayden's Mommy)
www.caringbridge.org/visit/jayden
Vicki Fields <jarjaysmom@aol.com>
Louisville, KY US - Monday, April 9, 2007 0:17 AM CDT
praying so hard for Doodles!! Love you guys! Get well honey and happy easter!
Deejay
- Sunday, April 8, 2007 9:42 PM CDT
Trish,
I'm praying for you and Makily and Allen. The Lord is risen!! May he give you his power and his peace--and some sleep.
Lucy <lucysrausten@hotmail.>
- Sunday, April 8, 2007 6:05 PM CDT
Sweet pea hope you're feeling better!!! Happy Easter!
Julia Curosh <JCxKYgal@aol.com>
Portage, IN United States - Sunday, April 8, 2007 10:00 AM CDT
Makily, You are the cutest Easter bunny I have ever seen.
So sorry to hear you are poorly hope you feel better soon
Hugs and kisses from England
love
Ali and Fabyan
Ali Di Maggio <a.dimaggio@btinternet.com>
Bristol, England - Sunday, April 8, 2007 2:52 AM CDT
The site is beautiful in every way. The video/slideshow is outstanding. Perfect photos of a perfect little girl. The words you wrote to accompany the photos were so touching and insightful. Your little family is blessing the world! Happy Easter!
Larry Whitler <sirgiant@hotmail.com>
Ocala, FL USA - Saturday, April 7, 2007 8:58 PM CDT
I saw your link on the special child exchange and thought I would take a peek. So sorry to hear that Makily has pnuemonia. At least she didn't have to go into the hospital. My son, Morgan, has partial trisomy 18 and partial monosomy 9. He has some of the same issues as your sweet Makily.
Hope you are all able to go to church tomorrow and that Makily can enjoy her Easter. Prayers to you all.
Holly & Morgan
http://www.geocities.com/hmmmcormick
www.caringbridge.org/visit/morganmccormick
Holly <hmmmcormick@yahoo.com>
DSM, IA - Saturday, April 7, 2007 6:59 PM CDT
Here's hoping your little birthday bunny is feeling well enough to deliver those Easter eggs ASAP. Hugs,
Vikki Stefans <vstefans@george.ach.uams.edu>
Little Rock, AR USa - Saturday, April 7, 2007 6:07 PM CDT
Makily,Happy Easter & Happy Birthday
God bless,love & hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, April 4, 2007 10:43 PM CDT
I hope you had a wonderful birthday Makily. Trish you have been in my thoughts. Hugs!
Lynnelle
Tulsa, OK - Tuesday, April 3, 2007 9:46 PM CDT
HAPPY BIRTHDAY MAKILY!
Wow, sorry it's taken me so long to get to your site. I have checked in periodically but this is just ridiculous! Lol. Makily is such a little angel and I am so happy that I am able to see how she is doing. You and Allen are great parents.
Love and hugs to the Birthday Girl!
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Tuesday, April 3, 2007 12:20 AM CDT
Happy Birthday little Doll!
Michele and Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, ut usa - Monday, April 2, 2007 10:04 AM CDT
Happy 3rd Birthday, Makily!!! Trish and Allen, we're praying for you especially, since this is a bittersweet time for you. God has certainly given Makily wonderful parents!
God bless you!
Genna and Debbie Bock <vonbox@earthlink.net>
Circle Pines, MN - Sunday, April 1, 2007 10:26 PM CDT
Happy Birthday, Baby Girl! You're Mommy and Daddy have done a great job with ya. You are proof of what strong will and determination can accomplish. While I haven't actually met you face to face, I am proud to be apart of your life via mommy's updates on the internet. Love and Kisses!
Janie Tucker <janietucker@yahoo.com>
Crawfordville, FL USA - Sunday, April 1, 2007 8:59 PM CDT
HAPPY BIRTHDAY MAKILY. EVERY BIRTHDAY MARKS ANOTHER YEAR OF GROWTH AND ACCOMPLISHMENT NOT ONLY FOR YOU BUT FOR THE WHOLE FAMILY. YOU HAVE MADE US ALL STRONGER AND MORE LOVING AND WE REALLY KNOW WHAT IS IMPORTANT IN LIFE. GOD KNEW WHAT HE WAS DOING WHEN HE GAVE YOU TO YOUR MOM AND DAD. YOUR PAPA AND I ARE SO PROUD OF ALL 3 OF YOU. WE LOVE YOU AND WILL ALWAYS BE THERE FOR ALL 3 OF YOU. LOVE NANNY AND PAPA
SHARON TILLIS <ROSEBUDD1968@AOL.COM>
OCALA, FLA UNITED STATES - Sunday, April 1, 2007 4:48 PM CDT
Cool MySpace Comments
Mickey <mickeyrose2000@yahoo.com>
AN ALABAMA PRAYER BEAR, - Saturday, March 31, 2007 11:00 PM CDT
Cool MySpace Comments
Mickey <mickeyrose2000@yahoo.com>
AN ALABAMA PRAYER BEAR, - Saturday, March 31, 2007 10:58 PM CDT
Happy Birthday Makily!!
I hope your day is as beautiful as you are. :)
Susan
Canada - Saturday, March 31, 2007 7:14 PM CDT
(Imagine this in primary colors, and a more interesting font. . . .)
Happy Birthday to you,
Happy Birthday to you,
Happy Birthday, dear Makily-y-y-y,
Happy Birthday to you!
I hope you have a great third birthday!
Carolyn (Grandma to Elijah, from the PRS list)
Hockinson, WA - Saturday, March 31, 2007 3:20 PM CDT
Makily,
You are so precious with you anut sing the song you have come a long way what a sweet little inpration you are
with Gods Love and prayers
www.caringbridge.org/tn/kayla
www.caringbridge.org/tn/mimmie
April and "angel" Mikayla, and 4 Earthly Blessings <babymsmom04@yahoo.com>
Tn USA - Friday, March 30, 2007 2:12 PM CDT
Makily, How precious you are. I get more touched by you every time I visit. I love the video of you and your aunt singing. How precious those smiles are. God made you incredibly special. I know what your mom means by being blessed by being your mother. I feel the same about Molly. I can not even count the many blessings she has brought into our lifes and the people that she has touched in her short life is breathtaking.
www.caringbridge.org/visit/mollygrace
Bridget Jordan <jordanbridget@bellsouth.net>
Gray, Ky - Thursday, March 29, 2007 9:07 AM CDT
We just dropped by to check on you today.
Jodi and McKayla
Jodi Phelan <jodiphelan@hotmail.com>
Sherwood Park, AB Canada - Wednesday, March 28, 2007 0:44 AM CDT
Trish and Makily,
I tell you what, I am so glad that I stopped by to check in with you girls tonight! I will tell you why....
Riley was doing pretty good yesterday and it was at exactly 1 am- WHAM~!!!! Smacked right in the chest with a terrrible chest cold, cough, and fever! Today it was horrible and we just got home from spending 4 hours with our doctor who almost admitted Riley because they could only get her O2 levels to 88%. Luckily her xrays were taking a little while so while we waited the doctor had us give her a neb treatment and then checked her again 20 minutes later and she was at 92%. The doctor looked at us and said, "She is borderline....below 90% we get a little nervous...if you promise me that you will go home and get some sleep, I will have her addmitted for observation-- if you would only end up staying here at the hospital with her, you would get no sleep and you would probably be better off at home..." GOD, I love that woman!!! I almost had Riley admitted because she started coughing something horrible right then and that made her cry which in turn made her get more upset and then she started seizing more! It is a terrible cycle...anyways, my point was that I was tired, sat in a waiting room with my terribnly sick daughter around all of these (5 to be exact) babies that were all there for their 1 year check up and shots and were all learning how to walk, and already feeling pretty down about life....it seems llike whenever I am in a terrible mood (which really isn't often) every child that is learning to walk, is obssessed with me!!! I had tears alll day long...it was just one of those days where I really felt like "I can't do this for the rest of my life...what am I going to do?" well, then we got RIley home, she had two shots of antibiotics, motrin and a neb treatment and is sleeping peacefully (AMEN!!!) and then I sat on the couch and checked your web site!!! That video just lit my face right up! I would never forget how very special our girls are, but it was a beautiful reminder! When I read about the stander I kind felt like I was there cheering her on!! I needed to hear some good news! Lately it seems to be raining on our parade constantly and we seem to have forgotten our umbrella!
Anyways, sorry this is so long, but I just had to share...I feel almost a little rejuvinated! Keep up the good work, both of you!
Sending all of our love and cheers!
Nikki, Aaron, and Riley (27 months old, Aicardi Syndrome)
RILEY NICOLLE'S SITE
The Lignell- Spauldings RILEY NICOLLE'S SITE <aaronandnikki@charter.net>
Farmington, MN - Monday, March 26, 2007 9:01 PM CDT
Hello Makily and mom . We are new to the P2P group and saw your link and followed it . Your daughter is a little doll and sure is a brave soul just like all of our kids with special needs. I know that I have learned alot with our precious little girl Maggie. Maggie is baby #4 for us . I am a mom with 4 girls :>)
Tracy
Mom of 4 girls , Marilyn 9, Katie 7 , Hannah 3 , and Maggie soon to be 8 months ( VACTERL Association )
www.caringbridge.com/visit/margaretreed1
Tracy <spongebobswim76@verizon.net >
Corry, PA USA - Saturday, March 24, 2007 8:29 PM CDT
So glad to hear Makily's doing (and feeling!) better. Hurray!
Carolyn (Grandma to Elijah from the PRS list)
Hockinson, WA USA - Thursday, March 22, 2007 5:45 PM CDT
Trish, I don't always get a chance to sign the guestbook but wanted you to know I check almost everyday on you guys. I love you and Makily so much and pray for her daily. You truely are the best Mom in the whole world. Your strength and determination truely amaze me and enspires me more then anything else in this world. I am so happy and glad that she is feeling worlds better and hope she continues to improve. Anyways please keep in touch I know I don't get to respond much on CAB either but know you three are in my thoughts and prayers every single day. I speak of you often to people about your courage and the kindness you have shown me. I love you girl! And give Makily a kiss and a hug from me and my girls! MWAH!!
Katrina Blatz <katrina.blatz@stocksupply.com>
Miamisburg, OH USA - Thursday, March 22, 2007 8:03 AM CDT
I am so glad to hear that Makily is starting to feel better! It is so hard to watch our children be sick and so under the weather!
Riley is still in our room in her crib too and I have been thinking about putting her back into her room too! Before she was born I decorated the walls with a really cute huge oak tree and a huge scene and now it kinda seems funny as a guest room with all the little animals and stuff! LOL
I wish you lots of luck and well wishes through the separation period- I know that sounds a little silly, but I have been with Riley 24/7 since she was born and it is a really hard thing to go through but once you do it, you will make it through and be alright!
I keep checking in with you all- and I love the videos and still get teary if I watch the montage! I am a sap! I have said it before a bunch of times, but your little girl is sooo beautiful and so wonderful - you have got to be so proud of her! Actually, I know that you are, because I can just "hear" it in your words!
Sending you all hugs,
Nikki, Aaron, and Riley (27 months old, Aicardi Syndrome)
Nikki, Aaron, and Riley RILEY NICOLLE'S SITE <aaronandnikki@charter.net>
Farmington, MN - Wednesday, March 21, 2007 1:06 AM CDT
Hello Young Lady,
Your story is truely a miracle and gives so many others hope and inspiration when it seems like nothing is going to happen. God has truely blessed you with a loving family and beautiful smile. Continue to press forward for the high calling. God has used you to uplift his glory and honor so continue to be an Ambassador for him in this lost and dying world.
Tony Locklear <nativeelderassist@yahoo.com>
Maxton, NC - Tuesday, March 20, 2007 4:10 PM CDT
To Makily and her Mommy and Daddy,
I know we don't know each other (I'm Bethany Pearson's step-aunt) but I've been following Makily's website through a link to Bethany's site. I have wanted to write to you for so long now, but the words kept escaping me. You write with such passion and eloquence and put your feelings into words so well, that I wanted to echo that. The words still escape me, but here goes...
Makily, you are a beautiful, special little angel who was put on this Earth for reason - to be a loving inspiration to us all. Because of you and all of your trials and suffering, you have helped me to not take for granted my 3 year old son Jack's health. Through your mommy and daddy's sharing of your story, and their deep, profound love for you, you have helped me love my son more deeply than I could've ever imagined. Thank you from the bottom of my heart for sharing your walk with me, it has helped strengthen my faith in God and humankind. You have touched my life more than you will ever know. Thank you.
Jodi Byers <jodi.byers@comcast.net>
Fridley, Mn USA - Tuesday, March 20, 2007 2:56 PM CDT
Hello
It's wonderful to hear that cute little Makily is doing better. Your such a wonderful parent to her. She is one lucky little girl. :)
Jenny <Jassie26@hotmail.com>
Madison, WI United States - Tuesday, March 20, 2007 0:44 AM CDT
Get well soon Makily! You have so much to learn and do. Hugs and prayers to you Trish and Allen. Love, Janie
p.s. any news on the test results?
Janie Tucker
Crawfordville, FL USA - Sunday, March 18, 2007 2:55 PM CDT
Hi Trish and Makily,
I wish you the best and I am here if you need me.
Mary Turner <IBEWfamily@aol.com>
Dunnellon, Fl Citrus - Sunday, March 18, 2007 9:46 AM CDT
Hi, Trish--
I'm praying for Makily--and for you!
Carolyn (Elijah's grandma from the PRS list)
Hockinson, WA USA - Saturday, March 17, 2007 1:31 AM CDT
Happy St. Patrick's Day! I hope you are feeling better soon. Have a nice weekend!
caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Friday, March 16, 2007 10:35 PM CDT
Sounds like Roto... Praying it stops soon and is nothing else.
Hugs from Utah
Michele and Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, Ut USA - Friday, March 16, 2007 12:05 AM CDT
Thanks for visting us. What a beauty you have. Sorry that the flu has hit your house. We dealt with it also not that long ago. Sending prayers for everyone to feel better soon and some sleep.
www.caringbridge.org/visit/sophiawinters
Nicole & Sophia <nicole.weber@state.mn.us>
WSP, MN - Thursday, March 15, 2007 9:50 AM CDT
Trish,
I love the new videos. She is doing so well. I am sorry to hear that she is sick though. Just when they are doing so well something else has to come along and knock on them a little. Madison was doing so good with her eating and I knew she had gained weight. Then she got sick and started throwing up and today we went in for a shot and in 2 months time she has gained a grand total of 2 oz! Bummer. Well she is eating better again so maybe we can get over 20 lbs soon. Hope Makily is doing better really soon and back to standing up and sitting down. She looks so intent watching tv. By the way. She looks like she just got out of the Salon in her new Cabbage Patch snuggle picture!
Take care,
Pam and Madison
www.caringbridge.org/visit/madison
Pam Miller
- Wednesday, March 14, 2007 6:20 PM CDT
Great work, Makily! I truly appreciate what a milestone this is for all of you. Hard work pays off! I hope that Makily feels better soon.
Stacey & Emily
Richmond, VA - Tuesday, March 13, 2007 8:35 PM CDT
How clever is that girl - and her mammy and daddy ;o). Makily is growing so much and all your hard work is definitely paying off. Well done Makily! Take care of yourselves. Lots of Love, May, Shaun, Mhairi-Anne and Stuart.
xxx
May Mayberry
Irvine, Scotland - Tuesday, March 13, 2007 4:27 AM CDT
Yeah Makily! I am so proud of you too! You are so amazing! Keep up all the hard work.
I am praying for you to feel better little one!
Love Michele and Nathan
www.caringbridge.org/visit/nateypatey
Michele <shel4974@hotmail.com>
Layton, UT USA - Monday, March 12, 2007 9:14 AM CDT
Hey Makily...I am so proud of you! You are such a strong and brave little girl! Love you and hope that you continue to progress! Your mommy and daddy sure do love you and are doing such a great job raising you!
Hugs and Kisses to you all and Trish I will be talking to you soon.
Michelle <madisontaylor_mom@yahoo.com>
- Sunday, March 11, 2007 9:49 AM CDT
Way to go on all your progress Makily! The sky's the limit (and maybe not even)! Can't remember how I found your site (through someone else's CaringBridge page probably) but fell in love with your little angel. I don't blame Mommy for kissing on her all the time! Too cute! God bless. Makily surely was given the right parents.
Heather
Fairfield County, CT USA - Saturday, March 10, 2007 1:03 PM CST
Way to go Makily!!!! And, mommy and daddy too for the hard work. Let me just say that I cried my eyeballs out watching those videos. Makily is a symbol of hope! She is an example of what hard work and determination can get ya. Thanks for keeping me updated on her progress. She is a doll! Oh yeah, You guys are ALWAYS in my prayers. Feel Better Makily!
Janie <janietucker@yahoo.com>
- Saturday, March 10, 2007 10:58 AM CST
I am very familiar with caringbridge.com through a child's friend. I found Makily's site through parent-2-parent.com. I just needed to tell you that the picture video that you created is absolutely beautiful. It did what you intended. I am thankful for the health of my child. Addyson has FPIES and GER, I have been asking myself "why, this isn't fair?" and from this moment forward, I will change my attitude. Thank you for sharing your daughter's and your story. I greatly appreciate it and I am positive that you have touched so many other lives. Thank you.
Tracy
Auburn, AL USA - Friday, March 9, 2007 5:25 PM CST
Hi Caldwells!
Thanks so much for checking in on our miracle girl's progress and encouraging us in our journey. We praise God for His abundant blessings and for the strength and courage He gives each new day to rise up and be HIS conduit of LOVE to those around us. It's phenomenal to get a glimpse of what He wants to accomplish in and through our lives when we choose to say, "Not my will, but Thine, Oh Lord!" You are a living testimony of the goodness of God and you radiate His attributes. Thank you!
Life is indeed a gift and Li'l Makily and Y'all are helping myriads of people gain fresh perspective about what is important in life. She is BEAUTIFUL!!! Your montage is an amazing tribute to love!!!!!
Psalms 71 has some deep insights for life in a fallen world and echoes my heart's cry. Verse 14 has become my life verse: "But as for me, I will always have hope; I will praise You more and more." Though we often experience troubles, many and bitter, God's promise her is that He will restore life again, He will again bring us up, He will increase our honor, and He WILL comfort us once again! My response is to choose to praise Him for His faithfulness. He never changes and this truth is joy to me. All His thoughts toward us are HOLY. He doesn't remember our failings of yesterday, but gives us hope for our future glory.
Some day and for ETERNITY, we all will be perfect and complete in Him. It comforts me to know my daughter's head will have no titanium in heaven!!! Little Makily will run and dance and sing praises with you and my girls and all the saints in unity and harmony. It will be indescribable!!Also, our time apart from our precious daughter who died in the accident is brief in comparison to eternity in paradise. These truths give me incredible hope. May they encourage you, too!
Giving thanks today,
Sharon Pearson
Sharon Pearson <pearsons@usfamily.net>
Wyoming, MN USA - Monday, March 5, 2007 9:12 AM CST
A beautiful update as usual!!!
Teressa Stallion <stallion@camtel.net>
- Saturday, March 3, 2007 11:11 AM CST
Hi Trish,
We are just getting back from Disney and was so thrilled to see that there was an update. Glad to hear that things are quieting down for you. No fun all being sick!!
I can't believe that you are doing the transition thing already!! What are you going to do with yourself when your little girl goes off to school???
The new montage is absolutely beautiful. I can see why it took you so long to get it done. I wouldn't even know where to start. Very beautifully done. She has come a long way and will continue to surprise you each day!
Take care,
Pam and Madison
www.caringbridge.org/visit/madison
Pam <aquanutt1@bellsouth.net>
- Friday, March 2, 2007 9:11 PM CST
Cool MySpace Comments
Mickey <mickeyrose2000@yahoo.com>
AN ALABAMA PRAYER BEAR, - Friday, March 2, 2007 1:15 PM CST
Hello,
I am a teacher working with deafblind students. One of my students just came to our school this January. He too has Emanuel Syndrome. As I was unfamiliar with this syndrome I started to do some research and searching the internet. I found your website and must say it is wonderful. The montage is very beautiful. Keep up the positive additude!! I hope to see more of your cute daughter soon. I will be checking back soon. Thank you for the information and the links to resources. They have come in handy.
Diana Ireland <diana.ireland@ontario.ca>
Waterloo, ON Canada - Thursday, March 1, 2007 5:55 PM CST
hi, I found your page while just searcing the web. anyways your daughter is so cute. what a brave lil girl. she has been thru so much but yet is still so happy. i have a disabled lil one too. my son will be 3 on 4/27. he has severe brain damage due to a lack of oxygen during delievery, he also has cerebral palsy, seizures at birth, hes trahced, has a g-tube, nothing by mouth, & oxygen dependent. go to www.cameron42704.zoomshare.com to see pics of my lil man. my son also has has numerous hospital stays. if you ever want to chat further my mail is: chrisandcandy2000@yahoo.com well take care & hugs to the peanut. luv always candy & cameron
candy ouellette <chrisandcandy2000@yahoo.com>
bedford , nh usa - Thursday, March 1, 2007 9:44 AM CST
Hi, Trish--
Wow! What a beautiful montage of pictures and truth. It took me over an hour to view it (yes, we have dial-up) but it was time well spent. I smiled and cried by turns. Thanks for sharing John 9.1-3, btw--first on the site and now in the montage; that has become a very special passage to our family as well now.
Carolyn (Grandma to Elijah, from prs list)
Hockinson, WA USA - Wednesday, February 28, 2007 9:25 PM CST
Oh my Gosh, her hair is getting so long and so beautiful. She is getting so big! The video montage was just beautiful...thanks for making me cry at work!
Hugs from your PRS buddie Nathan
Michele and Nate
www.caringbridge.org/visit/natey/patey
Michele <shel4974@hotmail.com>
Layton, ut usa - Wednesday, February 28, 2007 8:51 AM CST
The montage is beautiful Trish.
Makily you look so cool in your shades, girl!!!
Lots of love and kisses from England
Ali Di Maggio <a.dimaggio@btinternet.com>
Bristol, England - Wednesday, February 28, 2007 5:09 AM CST
I loved the slide and pictures you added on her sight. It shows what a true blessing Makily is. She is so loved and so loving. Everyone needs to count there blessing when there children are healthy but do not feel sorry for us, we have a blessing from god, he trusted makily to us. And she is a true blessing. I love you makily......Granny
Julie <ejulia1947@cox.net>
Ocala, Fl Marion - Tuesday, February 27, 2007 11:47 PM CST
I love your video!!!!! She is so beautiful. I hope that your eye is ok. Our kiddos are tough little ones. Have a blessed week
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, February 27, 2007 10:08 PM CST
That was a wonderful update and montage. I have learned a lot from you and Makily. Congrats and good luck. :)
Jenny <Jassie26@hotmail.com>
Madison, wi us - Tuesday, February 27, 2007 11:15 AM CST
What a great montage.
Tina & Angel Lance
- Tuesday, February 27, 2007 11:13 AM CST
Trish,
What a great page and a great way to update everyone. Makily's pretty cute and I love that long curly blond hair. Sorry about the flu and your EYE! Hope everything goes back to normal for you soon.
Julie M, from bt board
- Tuesday, February 27, 2007 8:55 AM CST
Trish, the montage is absolutely beautiful..thank you for giving others so much and sharing your love. Please kiss the little angel for me and know that all of you are in my heart every day..Love and miss you
Jackie <psychjackie@yahoo.com>
- Tuesday, February 27, 2007 7:29 AM CST
Trish...the montage is absolutely beautiful and will hopefully help to put other people's lives in perspective and help them to appreciate the small things in life. Makily looks great and she is so blessed to have such a wonderful family. Our thoughts and prayers are always with you and we keep you close to our hearts. We know that our precious Angel Shelby is on angel duty sprinkling sweet Makily with Angel dust and keeping special watch over her. God Bless,
Rebecca, Angel Shelby's mommy
www.caringbridge.org/visit/shelbygagne
Rebecca Gagne <rgagne@baminternet.com>
St. Thomas, Ontario Canada - Monday, February 26, 2007 8:19 PM CST
What can I say??? LOVE IT!!! Wow, Trish, you're amazing. Makily, you should do some professional modeling. Allen, watch out, she's gonna be trouble!
Janie <janietucker@yahoo.com>
- Monday, February 26, 2007 8:09 PM CST
Makily.
Tell mom she did an awesome job on your pictures!!
You are so photogenic!!! Sorry you guys were so
sick........we've had it too. Its not been fun.
Stay well!!
Alisa
Devin's site <tiredofcancer@yahoo.com>
- Monday, February 26, 2007 7:56 PM CST
Makily looks adorable in her sailor outfit! Emily and I enjoyed the montage...very well done. We are sorry that you had the Flu, but glad you all made it through without any hospitals.
We check in on your page often and love seeing Makily's beautiful face and hearing of her progress.
Stacey, Mom to Emily (balanced translocation of 3;12 chromosomes) <stacey49686@chartermi.net>
Richmond, VA - Monday, February 26, 2007 7:09 PM CST
I LOVE THE MONTAGE!!! I am so glad that there is a link on there so that I can make something like that for Riley. I had tears the whole time! Some tears of JOY- because your beautiful daughter IS a MIRACLE and I am so happy to see her doing so many different things that they said that she may never do! Some of my tears were because I know EXACTLY what it feels like when you are sitting in the hospital and they tell you that there is something so very wrong with your daughter. Life changes in a second- FOREVER. I also know that feeling that I would get for pretty much the first year of Riley's life when we would go to any doctor's appointment, that feeling that could make you sick at any minute, because you know that every doctors appointment always brings more bad news and you wonder how much more you can really take.
You are such a great mom and I know that sometimes when people say things about me being such a great mom to Riley and being so strong, I just want to scream and say, "I am not as strong as you give me credit for!!!" because I don't always feel very strong...but we do what we have to and we do it all out of love. I know that you feel the same way when I say that we wouldn't and couldn't imagine a life without our daughter...Aicardi Syndrome (Emanuel Syndrome) and all.
A woman once told me that our daughters will live a life that any and all of us only wish that we could...
Our daughters will live an entire life without sin. They are perfect beings in a body that is a little less than perfect.
Anyways, enough of me rambling! We are so happy that you are all over the flu!! YUCK!! It is so hard watching your child be sick and not be able to help! Then to top it off, it is soooo hard when "MOM" gets sick!
Anyways, Love the montage and remember that we are always thinking about you guys and we send you lots of love and prayers!
Go Makily on your standing!!!!
Hugs,
Nikki mom to Riley
RILEY NICOLLE'S SITE
The Lignell- Spauldings RILEY NICOLLE'S SITE <aaronandnikki@charter.net>
Farmington, MN - Monday, February 26, 2007 6:49 PM CST
She is so beautiful!!!!!!!!!!!!!!
You are such an amazing, strong mother. Wow!! The admiration I have for you.
Angie Beaudreau <angiebeaudreau@hotmail.com>
Redmond, WA USA - Monday, February 26, 2007 6:02 PM CST
Hey Trisha, You were always an amazing friend in school and always knew how to cheer someone and I'm glad to see that you havent lost that knack for making someone smile you have a beautiful daughter and I keep you and your family in my prayers.
Dawn Sparks-Wood <cdwood9595@yahoo.com>
Jefferson City , MO USA - Monday, February 26, 2007 5:46 PM CST
OK, I am going through Makily withdrawals!!! I know the bathrooms have to be done by now. Hoping that all is well with you guys. We are heading to Disney on Monday so I won't get to check on you for a while.
Take care,
Love, Pam and Madison
www.caringbridge.org/visit/madison
Pam Miller
- Thursday, February 22, 2007 6:11 PM CST
Cool MySpace Comments
Mickey <mickeyrose2000@yahoo.com>
AN ALABAMA PRAYER BEAR, - Friday, February 16, 2007 11:51 AM CST
Happy Valentines Day Sweetie
Love, Pam and Madison
www.caringbridge.org/visit/madison
Pam <aquanutt1@bellsouth.net>
- Wednesday, February 14, 2007 5:44 PM CST
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Wednesday, February 14, 2007 1:06 PM CST
I feel bad that I haven't been by your page in awhile.Lots going on here.But that does not mean that I don't think of you for I always do.I do stop by your page to see and read the updates just haven't had time to sign your guestbook.
**~
BRENDA~**MY LOVING DAD'S SITE WITH A NEW YEAR ANOTHER ANGEL <brurka@shaw.ca>****Edmonton~Alberta~Canada****, - Tuesday, February 13, 2007 10:58 AM CST
Been there done that! We just finished our second bathroom. My husband being the handy man that he is turned a weekend project into a 2 week project. But the end result is two beautiful bathrooms!
Glad to hear that Makily got over the retching thing quickly. Do you think she got a stomach bug? We are waiting on new AFo/SMO's as well. These girls can really grow! When Madison started with her first pair she wore a size 2 shoe and I had to get her a 4 to fit over the brace. Now she takes a size 4 shoe. I hate to think I have to get her a 6 shoe! Have you ever heard of Hatchback shoes. I think I am going to give them a try this time. They say they are really easy to get on and adjust quickly to either just the AFO or the combo AFO/SMO. Madison has to wear them 50/50. By the way, she is walking!!!
Take care,
Pam
www.caringbridge.org/visit/madison
Pam
- Thursday, February 8, 2007 9:04 PM CST
We are keeping you in our thoughts.
Travis and Brenda <fsgsmom@gmail.com>
Niceville, FL - Wednesday, February 7, 2007 7:51 PM CST
Holy decision. That's definitely a tough one. Prayers are with you, Allen, and Makily.
Jillian <jillybeanie17@yahoo.com>
Saginaw, MI USA - Thursday, February 1, 2007 11:25 PM CST
Hello Caldwells...Sorry I haven't been by for a while, but you are always in my thoughts. Makily looks great and what fantastic news about her being able to sit. It is always great to hear good news. The whole jaw distraction thing sounds pretty scary and you need to do what you feel in your heart is the right thing for Makily. I think you are so wise to get lots of doctors opinions before you make such a drastic move. Makily is very lucky to have two wonderful parents. God bless,
Rebecca Gagne, Angel Shelby's mommy
www.caringbridge.org/visit/shelbygagne
Rebecca Gagne
St. Thomas, Ontario Canada - Sunday, January 28, 2007 8:10 AM CST
What an adorable little doll you are, Makily.
Love you
Ali, Kevand Fabyan Di Maggio(Mosaic ring 22 trisomy)
Alison Di Maggio <a.dimaggio@btinternet.com>
Bristol, England - Sunday, January 28, 2007 5:17 AM CST
Hope Makily is doing well!
Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
., Minnesota United States - Saturday, January 27, 2007 8:55 PM CST
YOU GO GIRL!
Cool MySpace Comments
Mickey <mickeyrose2000@yahoo.com>
AN ALABAMA PRAYER BEAR, - Saturday, January 27, 2007 5:36 PM CST
Makily looks so big swinging in that picture! Ava is sitting up better now in a restaurant high chair too! I'm glad we can see progress being made with our girls. I get excied about the least little thing. You all must have had some warm weather in Florida to be swimming?
Emily Gray <EGGray109@aol.com>
Satsuma, AL USA - Wednesday, January 24, 2007 11:49 PM CST
Glad to hear from ya! I was beginning to wonder if you guys had disappeared. lol. LOVED the pictures.
Janie Tucker
Crawfordville, FL USA - Wednesday, January 24, 2007 6:42 PM CST
Heya Cutie!
You are so adorable!Lemme tell you! God is GOOD! You are so blessed and are doing so great! What a joy!!!!
Lucky you to have a great Mommy, too, Makily!
Stay happy, stay well and remind Mommy to keep posting the updates : photos and videos! They make my day!
Hugs to you all!
Susan Kirby
Putnam Valley, NY 10579 - Tuesday, January 23, 2007 11:38 AM CST
I can't say enough how cute she is. Of course you already know that! I am so glad she is doing so good. That picture with someone wearing the I love Hot Moms shirt, just cracked me up. funny....
I wish we could still go to the park in the winter... it has been 6 below here at night....burrrr.
Take care
Michele and Nate
www.caringbridge.org/visit/nateypatey
Michele <michele@amnutrition.com>
Layton, ut usa - Tuesday, January 23, 2007 8:57 AM CST
Hi Trish,
It was great to get up this morning and find that Makily had an update for me to look at. It seems as though every update lately is filled with wonderful things to tell about the Miss! She is doing great! It is good to have all this written down so when the "Bumps in the Road" come along as we know they will, we have something to look back on and say, It is more smooth than bummby! As far as the paci thing goes only a mom of someone with an oral aversion would ever understand! The paci is the gateway to eating sometimes for sure. It was for Madison. I can send you a picture of the paci contraption that my ST came up with that started oral drinking for Madison. It was a very clever idea and although the paci they used was not the same as what we were able to get her to suck on she still after a while accepted it and then began to take milk through it. We started with a cc and worked our way up very slowly so as not to freak her out. It worked for sure.
Love the shades, love the new pictures and love that girl. Glad you got to spend time at Sea World. That really is my favorite park in Orlando. We are coming up your way the last week in Feb. It will be Madison's first trip to Disney! I can't wait. She won't know what to do with herself.
Give that sweetie a little kiss from us.
Love, Pam and Madison
www.caringbridge.org/visit/madison
Pam <aquanutt1@bellsouth.net>
- Tuesday, January 23, 2007 6:56 AM CST
Just stopping in to say hi.
Tina & Lance
- Sunday, January 21, 2007 8:52 PM CST
Have a wonderful week
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Sunday, January 21, 2007 1:16 AM CST
Hey Trish and family,
I just wanted to let you know that my niece had a jaw distraction (2 actually). She had one at 6weeks, but because her bones were so soft still at that age, one came out.. BUT they were able to move her jaw enough to prevent a trach, which is great! Then 6mo later, she had another one to add more length. She has done great during both of the surgeries and afterward. When she had the second one, she was learning to walk and everything and my sister was afraid she would hurt herself, or even pull at the distractors, but she never touched them and they didnt seem to bother her. She didnt like the turning the first week or two, but then it got better. I would just recommend tylenol prior to turns. These distraction surgeries were a lifesaver for my niece and my sister is so happy she did it, otherwise she would have been trached. My niece still doesnt eat by mouth, she has some oral aversions due to being on a gtube, but is gaining more interest in food everyday. I hope that you are able to come up with a decision.. there are many people that will support you in whatever you decide. Please let me know if you need any other info, etc.
Melanie
Melanie Bodin <meljbodin@gmail.com>
Minneapolis, MN - Sunday, January 14, 2007 5:40 AM CST
HAD TO STOP BY AND LET YOU KNOW THAT I'M THINKING OF YOU.
YOU ARE JUST SO ADORABLE SWEETY.
LOVE BRENDAMY LOVING DAD'S SITE A NEW YEAR ANOTHER ANGEL <brurka@shaw.ca>
*EDMONTON~ALBERTA~CANADA*, - Friday, January 12, 2007 1:43 AM CST
Still praying for you three, and for your distraction decision-making!
Carolyn (Elijah's grandma--PRS, etc.)
Hockinson, WA - Wednesday, January 10, 2007 9:00 PM CST
Just checking in. I hope things are going well. You remain in our prayers.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Wednesday, January 10, 2007 10:32 AM CST
hi ther emy daughter harley has a gtube with cleftpalate that cant be repaired due to her bleeding disorder and narrow airway she has sevre gerd we thought they would be taking it out this year but they wont she also had a tumor removed from her muscle in her left cheeckbone which was growing fast and causing problems in her righteye. she just got over phenumonia this week. wellstop by and visit her site and say hi.
www.caringbridge.com/de/harleysdigeorgepage
amy <harleycheysmom01@aol.com>
dover, de usa - Tuesday, January 9, 2007 10:05 PM CST
Hi Guys! Love the Christmas pics. My heart goes out to all of you. Trust in God. He's led you straight thus far. Love, J
Janie Tucker <janietucker@yahoo.com>
Crawfordville, FL USA - Sunday, January 7, 2007 10:16 AM CST
Guys, you are in our prayers as you have this journay to make...God will not lead you down the wrong path, trust in him.
We love you all soooo much.
The Teals <Stage845@yahoo.com>
- Friday, January 5, 2007 7:47 AM CST
Best wishes for a wonderful
Love Joseph
www.caringbridge.org/fl/joseph
Elizabeth <michael_shipley@bellsouth.net>
- Tuesday, January 2, 2007 7:55 PM CST
Hi, Trish--
I am praying for you and Allen--for wisdom and for peace in your decision-making.
For whatever it's worth, a jaw distraction was absolutely and literally a life-saver for Elijah, and turning the screws didn't seem to bother him at all.
Carolyn (Grandma to Elijah, 1 y.o.--PRS, etc.) <Tobijah@aol.com>
Hockinson, WA - Tuesday, January 2, 2007 7:28 PM CST
Click here to sign the guestbook.
| Donate | How To Help | Partnerships | Contact Us | Help | Terms of Use | Privacy Policy | |
|
Copyright © 1997 - 2004 CaringBridge, a nonprofit organization, All rights reserved. |