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Alex, I knew you in primary school around 1999, so good to read you're doing so well. Best wishes Matt
Matthew Fox
Derbyshire, UK - Thursday, June 9, 2011 3:38 PM CDT

Hey Alex,
You are just one year younger than my daughter Kathryn. She turned 19 Feb. 5th 2010. She was diagnosed with a GBM in April 2010. She was also diagonosed with a medulloblastoma in 1999. She is doing well and I heard you are too. You have 8 years since your diagnosis and that's great. I'm a school teacher and there should be no stopping you from working in the school system too. I wish you the very best.
Carol Bradley
Carol Bradley <cab82461@yahoo.com>
Lakewood , wa USA - Friday, October 29, 2010 4:27 PM CDT

My daughter Leah is 18yrs , and is now a 12yr survivor of Meddullablastoma, she has had complications on her journey , but remains positive and hopeful everyday , best wishes on your continued recovery Alex ...
Wendy Birchall <alanbirchall@ntlworld.com>
Bolton, Lancs GB - Wednesday, September 8, 2010 5:31 AM CDT

Fantastic story of hope Alex, wishing you lots of luck with your future scans, you are in my prayers, My husband Martin was diagnosed with gbm 4 in june 2008 and he is batteling away, lets hope and pray he does as well as you, keep fighting Alex. xx
Mrs Gayle Forbes <gayleforbes@hotmail.co.uk>
Galston, scotland uk - Monday, March 1, 2010 9:49 AM CST

Happy Belated Birthday Alex! It's been quite awhile....going through my older guestbook entries I found a few CB kids I wanted to check on! Sending prayers that the scans are scarring..I know how nerve wracking this can be...David was first dx in 2003 and again in 2004...so far his scans have been clear since the relapse...it never changes though..that feeling you get before the scans..he's getting them every 6 months now, so June 09 is his next. Hang in there!
Kathy-mom to David
caringbridge.org/fl/david
kathy <joy2jak@comcast.net>
boynton beach, FL usa - Sunday, March 22, 2009 7:16 PM CDT

Alex,
Happy Birthday!

I'm glad the scan results came back as no tumor growth. It is very frustrating waiting for the radiologist to intrepret the MRI results.

My nephew is now 6 years old and has been batteling his GBM for almost 2 1/2 years. I understand some of the long and winding road you have been traveling.

I am very proud of you and pray for your family.

Jamie Svatos
proud aunt to Caleb Gulizia - 6 years old - GBM
www.caringbridge.org/visit/calebgulizia

Jamie Svatos <jlsvatos@yahoo.com>
Omaha, NE USA - Monday, March 9, 2009 11:11 AM CDT

Good morning! We are Elise Krause's Gran and Grandpa --- thank you for signing into Elise's website.... It is great to hear your good news from 'over the big pond' and also to read the postings on your website. It is amazing how this caringbridge can connect us from different parts of the world - otherwise - we would have never known about you. Give Alex a big hug from us - here in Wisconsin. It is so wonderful to read about all the things he has been able to do and enjoy. You GO ALEX!!! You all have brightened our day today!!!!!

Bill and Sue Lindbloom
Waterford, WI USA - Wednesday, July 16, 2008 11:15 AM CDT

Thank you so much for visiting Elise's web site and offering hope. We do not get that much from the doctors here. Alex will be in our thoughts and prayers.

Kate & Elise
Kate <katekrause05@yahoo.com>
Greenfield, WI USA - Tuesday, July 15, 2008 7:20 PM CDT

Hi Lorraine and Alex...
Thanks for signing our guestbook..and giving me hope on this Mothers Day...it sure meant alot....
Hugs from PA....
Maria m/o Jeaneane..15 GBM
Maria Pavlicka <mepav40@yahoo.com>
Pocono Lake, Pa - Sunday, May 11, 2008 8:53 AM CDT

sister of Tammy 43 GBM IV left frontal lobe dx 10/07, good surgery 11/07 Radiation and Temodar. Currently on cycle 3 of Temodar.
Cindy Sturz <csturz@student.cvtc.edu>
Eau Claire, WI USA - Saturday, April 5, 2008 3:43 PM CDT

Hi, Alex:

This is Cameron. I have brain cancer too, Anaplastic Astrocytoma, and I live in Minneapolis, Minnesota. I just wanted to let you know that you have a brother here in Minnesota and I hope we get to meet someday.

I'm starting a magazine called Brain Candy, that will be written by and for kids living with brain cancer. Would you like to share your story for the magazine? Let me know. Let me know any other ideas you have that you think kids would like to see in a magazine.

I'm going to take a nap now, so I'll talk to you later.

Peace out,

Cameron
www.caringbridge.org/visit/cameron
Henry Allen <henry@braincandyproject.org>
Minneapolis, MN USA - Monday, March 31, 2008 8:24 AM CDT

I just read your story, and came across your site from anothers child's page. We will continue to keep you in our thoughts and prayers.

with much love and prayers
www.caringbridge.org/visit/dasiaatkinson

Kristina & Dasia Atkinson <dasiasdiary@yahoo.com>
Mobie, Al USA - Thursday, March 27, 2008 12:59 AM CDT

I found your website from the PBT Yahoo group. It is good to hear of a GBM patient doing so well for so long. My 15 year old daughter was dx with GBM last July. She has had two total resections (one after a recurrence) and has now had two clear MRIs. Your son gives us hope. It is good to read about him.
Kathy, Kelly's mom
http://thelaudes.blogspot.com/
Kathy Laude <kathylaude@cox.net>
Mission Viejo, CA USA - Friday, March 21, 2008 9:35 AM CDT

Hi, I got your website from the brain tumor group on yahoo. Keeping you in my prayers and hope you have a great weekend.

Elaine <eshattuck1@cox.net>
- Thursday, March 13, 2008 5:41 PM CDT

Wonderful news, love from Sarah (James's mum)
Sarah <sarahchacko@blueyonder.co.uk>
- Thursday, January 17, 2008 5:28 AM CST

Hi Alex,
My name is Jenna and I came across your page. You are an inspiration and a brave, courageous fighter. You will be in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Wednesday, January 16, 2008 10:28 PM CST

Happy Christmas Alex and Lorraine

I'm so sorry about your arm Lorraine, I hope it's a bit better.

I'm always happy to read about how Alex is doing - James would have been doing the same things, same school year.

Love from Sarah, James's mum
Sarah <sarahchacko@blueyonder.co.uk>
UK - Wednesday, December 26, 2007 12:56 AM CST

Hope you good health.
asma
benghazi, libya - Wednesday, October 31, 2007 7:03 AM CDT

What a happy young man! Congratulations Alex. I was diagnosed with an astrocytoma, malignant and inoperable in July, 2006. I've had radiation, and chemo and I am working full time and feeling pretty good. You are an inspiration to me. Thanks and stay positive.
Cheri Swales
Columbia, MO USA - Tuesday, October 30, 2007 7:33 AM CDT

Congratulations on the great MRI results, and on being a 5 year survivor! Reading the posts brought both tears and hope, you are in my prayers with all the others who are not giving up!
Villa (wife of B. dx astrocytoma III-IV Oct. 2006)
Reykjavík, Iceland - Thursday, September 6, 2007 11:01 AM CDT

congrats !!! on your five year anniversary !!!!
you are an inspiration to all those kids with gbm's out there !!!!
love, alice, mother of lexie, age 9
www.caringbridge.org/visit/lexiewilliams
alice williams <awilgent@comcast.net>
lakeville, ma. - Sunday, September 2, 2007 6:09 PM CDT

Hi Alex and Lorraine!
Thanks for stopping by my site and saying hi! (I was diagnosed with a GBM over 3 years ago.)Alex.....your ROCK! 5 years???? You are my hero! Keep it up. You are a true success story my friend. Have fun in school. My kids have been in for 2 weeks now! (California)
Have fun.
www.caringbridge.org/ca/kate
Kate Burke <kbliftch@aol.com>
Santa Rosa, Ca - Friday, August 31, 2007 3:35 PM CDT

Congratulations on your five year anniversary Alex! We are so thrilled for you. You are an example to so many that miracles really do happen. I'm sure you have already given so many people tons of hope and will continue to do so.

Hugs and Congratulations,

Kristen and Cassie (from PBT site) <kannmartinez@sbcglobal.net>
Grapevine, TX - Wednesday, August 29, 2007 8:40 PM CDT

Congradulations!!! Alex is an inspiration to me I am so happy he has made this 5 year mark!!
Carrie Rutledge <rjrutledge@comcast.net>
Middleboro, Ma USA - Tuesday, August 28, 2007 8:24 PM CDT

What great news! Your story provides hope to many families. Alex certainly is a courageous and brave young man!

Susanna
m/o Simon- DIPG
Susanna Aliotta <susannaaliotta@yahoo.com>
- Tuesday, August 28, 2007 3:57 PM CDT

Great news on your 5 year anniversary and great MRI news!! My daughter Courtney is 15 (soon to be 16) and has a large benign tumor- central neurocytoma. She'll start radiation in Boston in the middle of September. Good luck as you start school this year. We've already started. How fast summer has gone. Take care of yourself.
Hugs & Prayers -
Sue & Courtney Horn
www.caringbridge.org/visit/courtneyhorn
Sue Horn <sportsmomseh@aol.com>
Columbus, OH USA - Monday, August 27, 2007 10:40 AM CDT

I'm glad Alex is so well, James always had trouble with epilepsy medication changes, you're right, slow is best. Did he enjoy the Harry Potter? My Ben went to see Derby play, his friend is a supporter. And I had a good time in Nottingham, thought of you on the Tuesday but no chance to get away, love, Sarah
Sarah <sarahchacko@blueyonder.co.uk>
- Wednesday, August 15, 2007 2:03 PM CDT

Hi Lorraine,
I found Alex's site through another CB page! Sending you all prayers and continued wellness...it is quite a journey..my son David was dx with GBM in 2003...he will be 15 in October....so I understand where you've been and all the tribulations that come with it...during and after....praying for my new friend Alex,
Kathy
www.caringbridge.org/fl/david
kathy <joy2jak@comcast.net>
boynton beach, fl usa - Wednesday, August 8, 2007 6:29 PM CDT

It is amazing that you have come so far. You don't know me but your mom signed in on my son Jacob's page. She helped me so much. We are just beginning our journey and it helps so much to hear from the survivors. Thank you and keep up the great work!
Christine Bradley <cmbradley6@yahoo.com>
mansfield, ohio usa - Monday, July 23, 2007 1:54 PM CDT

Congrats on your MRI. Wonderful news. All the best!!!
Jim Herrity
Yorktown, VA USA - Sunday, July 15, 2007 10:56 AM CDT

Wonderful, wonderful news!!!!
Kristine w/o James 33 GBM
www.caringrbidge.org/visit/jameshare
Kristine Hare <kmw20045@yahoo.com>
cypress, TX USA - Friday, July 13, 2007 11:14 PM CDT

Whoooo Hooooo, GREAT NEWS!!!!

Hi Lorraine,

I'm so excited about this awesome report! Alex is precious. I know how excited you must be.

Keep holding on my friend,

Susan (from the PBT list)
Jordan <Susan2956@yahoo.com>
Baton Rouge, La - Friday, July 13, 2007 10:42 PM CDT

You are so very cool and courageous! I know how difficult this must be for you, so all of us in Long Island ,New York, are pulling for you. You have already beaten any statistics and will continue to do so. Much love! Jean Corrigan (sister of Brian GBM IV)
jean corrigan <jcorr914@aol.com>
long beach, ny usa - Friday, July 13, 2007 6:52 PM CDT

Hi Alex,
Wonderful news about your latest scan!!! What a blessing for such a brave and very strong young man! Keep up the good work - you are inspiring alot of us on this journey.
B'Lynn, proud mommy to mighy BT angel Stefan, forever 11
http://MySite.verizon.net/Bluetruly
B'Lynn
Potomac Falls, VA USA - Friday, July 13, 2007 3:58 PM CDT

Hi Alex,
Your Mom has been talking about you all over the world!! We are in Virginia in the U.S. and lost our little boy to a BT in January. You must be quite a brave and strong young man to have been givin this challenge. Keep up the good work - it helps us to see you thriving like you are :-)
B'Lynn, Proud mum to mighty BT angel Stefan, forever 11
http://mysite.verizon.net/Bluetruly

B'Lynn
Potomc Falls, VA USA - Wednesday, July 4, 2007 12:42 AM CDT

Hey Alex and Lorraine,

I am a member of the Temozolomide Yahoo group and thought I'd stop by and say hello! Lovely to see such a happy smiling young man, Alex you are an amazing BT warrior and it's wonderful to read your story and updates.

I will keep you both in my thoughts and prayers {{HUGS}} from just up the road!
Natalya <natalya@talj1980.plus.com>
Leeds, UK - Wednesday, July 4, 2007 9:40 AM CDT

hey alex do you remember us? we met at prestwick house 2 years ago. Mathew Dalgetty?? came with mum dad david adam 7 emily? well we are all getting on fine Mathew has been in remission now for 4 months and everything seems to be going well. we will never forget your singing. hope your well and happy wee man u deserve it the Dalgetty family xxx
Annmarie & Mathew Dalgetty <annmariedalgetty@btinternet.com>
Aberdeenshire, uk scotland - Thursday, May 3, 2007 9:14 AM CDT

Dear Alex and Lorraine,

You are an inspiration to folks all the way over the ocean to Tulsa, Oklahoma. My son Damion is 22 and has had 2 brain surgeries (2 different tumors) - a malignant and rare tumor beginning at age 19. I as a caregiver and Damion as a survivor thus far want to commend you both for your strength. Hang in there!
Diane Addison
Mom to Damion Henderson
Mesenchymal Chondrosarcoma - left temporal lobe & right frontal lobe
Diane Addison <diane.addison@sbcglobal.net>
Tulsa, Ok United States - Thursday, March 29, 2007 1:05 PM CDT

Happy 15th birthday Alex!

Lorraine, I know what you mean, when James was in remission we had so much stress with school, side effects, appointments, medication, worry - and people would say thank goodness it's all over .... things are never really the same I guess. But when you think what you wrote two or three years ago, how ill he was then, it's wonderful he is so well. Doing GCSEs even.

Love from Sarah
Sarah <sarahchacko@blueyonder.co.uk>
UK - Monday, February 26, 2007 2:40 AM CST

You are a true inspiration Alex...I am very proud of you!!
Gina :-) x
- Sunday, January 28, 2007 5:21 AM CST

Hi Alex,what a wonderfull brave boy you are.You are an inspiration.I wish you and all your family the very best.Well done to your family for never giving up hope.Love Sharon. grade 2 astrocytoma removed june 2006.
Sharon <lloyd126@btinternet.com>
Accrington , lancashire - Saturday, January 27, 2007 8:05 AM CST

Hi Alex! i have a son who has gbm on the brainstem and he now takes temodal and thalidomide. when we were at about to start using these drugs i found your story and i was really encouraged to go on. i hope and i pray that you will always be fine and maybe someday we meet you with my son Sokrates.
Happy new year,
love Michaela
Michaela Nalmpantoglou <nlmpntgl@yahoo.com>
Chalkis, Greece - Monday, January 15, 2007 6:17 AM CST

Hi Lorraine,

I hope you are OK, you've had such a lot of stress for a long time you are bound to feel it. Is Alex singing in end of term concerts? I was so jealous of the work experience, James should have been doing it too. We went to a memorial service today, and on Friday we are going back to see his ward before it shuts - first time back in the hospital without James, I'm not sure how that will feel. I hope you are feeling better and Alex is still doing well.
Sarah <sarahchacko@blueyonder.co.uk>
UK - Sunday, December 10, 2006 2:04 PM CST

LOL that was meant to say AWARD, (unless part of the prize is a whole hospital ward?)
viks <viks@postpals.co.uk>
- Monday, October 2, 2006 3:51 PM CDT

Hello Alex, well done on winning the ward, well deserved :)

Lots of love

Viks
Post Pals
viks <viks@postpals.co.uk>
- Monday, October 2, 2006 3:50 PM CDT

Hi Lorraine and Alex. So glad to see the brilliant progress Alex has made over the years. He certainly deserves all those awards. Fab pictures of you all as well....glad to see no Derby shirt in sight. Keep the positive heart! Love to all
Catherine Penrose
Leeds, UK - Thursday, September 21, 2006 9:38 AM CDT

Your story has given us some hope, so glad your mri was good long may it continue.
Yvonne m/o laura aged 22 dx GBM 0505 and doing ok
yvonne smith <johncraigsmith@tiscali.co.uk>
edinburgh, - Monday, August 28, 2006 10:47 AM CDT

Lorraine & Alex - Great news re the MRI. So pleased for you. Keep going, will check in again,
Love Penny & Harry (9 yo JPA)
Penny
Kent, UK - Monday, August 28, 2006 5:02 AM CDT

Congratulations on the 4 year aniversary, we had ours in June.
Lucy (Darin's mum).

lucy
- Sunday, August 27, 2006 10:57 AM CDT

Lorraine, I'm so jealous, we had the same option forms for James. But I'm really really pleased that Alex is doing so well. love, Sarah
Sarah <sarahchacko@blueyonder.co.uk>
Cheltenham, UK - Monday, July 31, 2006 4:10 PM CDT

Alex (and Lorraine) you are inspiring! Keep on fighting. Nobody knows where the journey will lead...but it's the journey that counts. I'm a 9+ year brain tumour survivor.
John Reay
Bowmanville, ON Canada - Tuesday, July 11, 2006 9:50 AM CDT

I found your link thru the brain tumor list. What a brave boy you are. Keep fighting!!!!

Pallavi
- Thursday, July 6, 2006 4:27 PM CDT

Hi Alex & Lorraine!!
We have just found you and are so happy to see such a wonderful young man, who sings, doing such good battle against this monster! My son, Stefan, is 11 and dx with a different but just as bad tumor. His journey is just beginning and you will be an inspiration to him. Thank you for sharing your journey with us :-)
B'Lynn & Garth, Jessica, Victoria Rose, Stefan, & Melyssa Mae in Virginia, USA
Stefan's site is http://mysite.verizon.net/bluetruly/
B'Lynn <BlueTruly@verizon.net>
Potomac Falls, va USA - Thursday, July 6, 2006 3:31 PM CDT

Alex,

Just learned about you thru the brain tumor list..what a brave and strong boy you are! I hope you are enjoying summer. Give your mom a hug from Chicago, Illinois!
Cathy B. w/o Lou dx inoperable gbm 10/04
http://lessonsfromlou.blogspot.com, IL usa - Thursday, July 6, 2006 11:49 AM CDT

So very happy about Alex's clear scans!! And you are right....these kids can't be on chemo forever, and GBM is so aggressive. Dave was on temador for a year when his tumor came back....now it's been 2 years clear since the second surgery and his new protocol....Dave has decided he will stop chemo in September.....he just wants a break and understands there are no gaurantees....but he will be 14 in October and wants to just be 'normal' for a change....so we totally understand where you are coming from and as a parent, how difficult these decisions are.....moment by moment. But their bodies need a rest. If anything, while theya re doing so well, they need a chance to build back their immunity levels....thinking of you and praying for Alex!!!
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Saturday, May 20, 2006 9:02 PM CDT

Thinking of you...

Alex, Happy belated Birthday!

I am sorry to hear about you mom, Lorraine.

Wishing you a Happy Mother's Day!
Gina & Drew <OneAngelsMommy@aol.com>
VA USA - Thursday, May 11, 2006 8:13 PM CDT

Hi there Alex,hope your still going strong. If you ask your mum about us she will explain who we are. We are related through your nanna Anne. Its good to see you have lots of friends who leave you lots of nice messages anyway speak to you soon Elizabeth and Julie xx
Elizabeth <bettyboo7800@hotmail.com>
- Sunday, April 23, 2006 2:39 PM CDT

Way to go on the SATs, I am so impressed. I must say though James loves school it's the chat not the work, he's missed so much now. Lorraine, you must be so proud of Alex.
Sarah <sarahchacko@blueyonder.co.uk>
Cheltenham, UK - Sunday, April 2, 2006 6:14 AM CDT

Happy Birthday Alex for Sunday

We hope you had a great day.

Sarah and James
Sarah <sarahchacko@blueyonder.co.uk>
UK - Tuesday, February 28, 2006 3:01 PM CST

Hi Alex and Lorraine,

I am just stopping in to day hi. It sounds like things are going fairly well. I am praying for a good scan. Take care. You are all in my thoughts and prayers.
Gina (Drew's Mom) <OneAngelsMommy@aol.com>
VA USA - Sunday, January 29, 2006 7:40 AM CST

Hi Alex...you're quuite a handsome kid! So glad you stopped by David's page (another GBM survivor) it's nice to keep in touch with someone that understands the type of cancer you have....you boys are true fighters! Keeping you in my prayers Alex....wishing you continued wellness.
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton, fl usa - Wednesday, January 18, 2006 6:36 AM CST

Hi Lorraine and Alex

Thank you for the message to James, and thank goodness Alex only had a virus.

love

Sarah and James
Sarah <sarahchacko@blueyonder.co.uk>
UK - Thursday, January 5, 2006 6:34 PM CST

Hi there, this is the first time to youre page. I heard about you from TJ's. We have just returned there from a long weekend. It is a great place, we went in the summer and stayed in Toms retreat, this is our first time at the lodge. I read youre entry in the guestbook and felt i had to stop by and say hi. My daughter had Neuroblastoma, but thankfully now NED, although has been left paraplegic due to her tumour. I will check by on you very soon for an update. Lots of love Beth and
megans page <bethhughes30@tesco.net>
croydon, surrey, uk - Monday, November 28, 2005 1:54 PM CST

Keep smiling & hope you have a great Christmas. From hot & sunny North Qld, Down Under. Wishing we could have a cool Christmas with you all over there.
Mum of Luke, diag Feb 2002,Pilocytic Astrocytoma, 2nd nodule rising.
Tass Staines <tass_staines@hotmail.com>
Townsville, Qld Australia - Saturday, November 26, 2005 7:01 AM CST

Hi Alex, Lorrain and Paul
Good to hear the scan results came back good. Glad to hear that you had another good holiday, I think your family really needed it. Time goes by so quickly doesnt it. Kayla has now been off her chemo for over a week. That has been 2 years and 2 months she was on it.

Hope you feel better soon Alex and have no more tempratures!!

Lesley, Craig, Kayla and Kyle xxx
lesleyjohnstone <lesleyjohnstone56@aol.com>
Glasgow, - Sunday, November 6, 2005 8:34 AM CST

Hi Lorraine and Alex, sorry we missed you at the seaside, we loved it too. We are so pleased Alex's scan was still good, you are our inspiration.
Sarah (James' mum) <sarahchacko@blueyonder.co.uk>
UK - Sunday, October 30, 2005 4:42 AM CST

Hi Alex. Just a quick note to say Hi. It was nice to see you again at prestwick. Sorry to hear you were a bit ill. Its hard not to get infections when you are in contact with other people. Hope you feel better soon.
Love from the Johnstone family. PS, I have some photos that Annmarie took of you singing to post on to you. You could e-mail me your address.
Lesley Johnstone <lesleyjohnstone56@hotmail.com>
Glasgow, scotland - Thursday, September 29, 2005 1:29 PM CDT

HEY ALEX,
ANNMARIE HERE, MATHEW DALGETTY'S MUM. MET AT PRESTWICK LAST WEEK. YOUR A FANTASTIC PERSON WITH SUCH GREAT COURAGE AND STRENGTH.YOUR SINGING WAS EXCELLENT, KEEP IT UP!
LOVE TO YOUR DAD AND MOM FOR US. KEEP FIGHTING MATE!
LOVE THE DALGETTY FAMILY IN FETTERCAIRN ABERDEENSHIRE SCOTLAND. X
ANNMARIE DALGETTY <david.dalgetty@btinternet.com>
ABERDEENSHIRE, LAURENCEKIRK - Sunday, September 18, 2005 3:05 PM CDT

Hi Lorraine and Alex,
My name is Rosi, I'm Lesley's mammy and Kayla's granny, you were all together at Prestwick last week. Kayla really enjoyed her holiday there. Lesley told me you're a great singer Alex, maybe I'll get to hear you one day. I'll check back on you soon. Love and prayers from Scotland, Rosi

www.caringbridge.org/hi/kayla
rosi <rospullin@hotmail.com>
Glasgow, scotland - Sunday, September 18, 2005 10:38 AM CDT

Hi Lorraine and Alex,
I hope the holiday was fun. James just got back from camp, he had a great time but now more tests as his last MRI didn't look good. He's feeling OK though, so hoping for the best.

Sarah (btuk and pbt lists) <jac135@blueyonder.co.uk>
- Sunday, July 31, 2005 12:54 AM CDT

Hi Alex & Lorraine:

Great news on the scan! I love the sound of "previous GBM". My thoughts and prayers are with you.
Gina (Drew's Mom) <OneAngelsMommy@aol.com>
Montpelier, VA USA - Thursday, June 16, 2005 5:51 AM CDT

Hi Alex & Lorraine:

I just stopped by to say hello. I think of you so often. How is Sammy? My thoughts and prayers are with you. I am praying for great results on the MRI/MRS.

Gina (Drew's Mom www3.caringbridge.org/va/drewb <OneAngelsMommy@aol.com>
Montpelier, VA USA - Thursday, May 26, 2005 8:37 PM CDT

Hi Alex and Lorraine, I'm glad you enjoyed your break and hope the repairs are going well. I am impressed with Alex's science result, James had a science test too (he's year 8 as well) - he couldn't remember any of it and his tutor was annoyed. He's done sausage rolls and flapjacks in cooking. Best wishes for the MRI, we get one in June (if they ever get round to sending the appointment)
love, Sarah and James (from btuk list)
Sarah <jac135@blueyonder.co.uk>
- Monday, May 9, 2005 1:22 AM CDT

Hi:

Just stopping by to say hi. I am really sorry to hear about Chris. Keep up the good work. My thoughts and prayers are with you.
Gina (Drew's Mom) <OneAngelsMommy@aol.com>
VA USA - Thursday, April 28, 2005 7:28 AM CDT

Hi Alex, I came across your website and wanted to send you a little note. What a strong and brave young man you are! I will keep you forever in my prayers. I have cardiomyopathy (heart failure) and am 29 years old, I have a 6 year old and a 7 month old, both boys named Jordan and Joshua. I wanted to share a bible verse that I always think about if I am in the hospital or just scared.. Its Joshua 1:9"Be strong and courageous, do not be terrified for the Lord your God is with you wherever you go." Always remember how much Jesus loves you, hes right by your side. Best of luck to you Alex. You are an inspiration to so many.
Karey <kareyleigh26@yahoo.com>
OK - Friday, April 8, 2005 10:21 AM CDT

hey Alex and mum and dad! its deborah, beths mum.... what a cool site, i am so impressed and will be checking out your journal. It was so lovely to have met you, Ben has been asking for you, he misses his playmate! you take good care, and I was very pleased to hear you singing.... a true star... keep in touch, lots of hugs to you all, Deborah, Bethany and of course BEN xxxxxx
Deborah Vaughan <xdebbzx@hotmail.com>
Whitehaven, UK - Saturday, April 2, 2005 7:25 AM CST

Hi Lorraine, Alex and family,
Have just read your journal and you are a real inspiration. My husband Joe (who's 48 ) has just been diagnosed with GBMIV and he is also suffering from seizures so seeing how well you have coped has been a big help. Also, he never used to eat vegatables either, but now that I have shown him how important it is and that you are doing it, he has promised to eat his spinach and brocolli ever day along with all the other healthy food which will help to make him better. I hope you had a lovely easter and that all continues to go well with your treatment.
Take care
Sue & Joe
Sue McIntosh <healthsaver@btopenworld.com>
Doncaster, england - Monday, March 28, 2005 1:19 PM CST

Hi you guys, I am Holley Brundidge, mother of Malcom Dakota Brundidge aka Dee age 5 he has an anaplastic oligodendroglioma grade 4 we live in Opp Alabama we also have a caring bridges page it is new and I haven't really finished it or gotten used to how to fix it as nice as yours! it's either al/malcombrundidge or al/dakotabrundidge or something like that check it out if you can find it. Dee asked what it was like to live in another country? take care and good luck!tankandwood@oppcatv.com
Holley Brundidge <tankandwood@oppcatv.com>
Opp, al USA - Monday, March 14, 2005 5:36 AM CST

Hi Alex and Lorraine,

It was great to see you both today. Alex you looked really well, despite having a line infection. Happy Birthday for tomorrow, hope you manage to escape for a few hours. Your web pages are great. Take care and see you soon along that corridor!

Lucie and Mary Bowley
Lucie and Mary Bowley <l.bowley@ntlworld.com>
Nottingham, England - Friday, February 25, 2005 12:38 AM CST

Hi Alex & Lorraine:

I just wanted to stop in and say Hi! You are both amazing. Keep up the good fight and stay strong. I think of your family often. Sending you lots of love, prayers and well wishes from the US.

www.caringbridge.com/va/drewb
Gina (Drew's Mom) <OneAngelsMommy@aol.com>
VA USA - Tuesday, February 1, 2005 5:23 AM CST

Alex, I loved looking at your pictures. You are an inspiration to me and my family. My boyfriend has a brain tumor. He is 42 years old, far older than you yet - we have learned lots from you. You are amazing! Keep up the smiles!
Linda Nickels <lindanickels123@comcast.net>
denver, CO USA - Sunday, January 30, 2005 4:28 PM CST

Hi Alex! What a great smile you have! You don't know me but we are part of the brain tumor family! I just wanted to tell you HELLO and tell you that you are an inspiration to many people! Keep the faith and stay strong!
Rhona m/o Caylan (13) www.caringbridge.org/tx/caylan <Rahunter05@aol.com>
Garland, TX USA - Thursday, January 27, 2005 12:30 AM CST

Dear Alex:
My daughter Erin also has a brain tumour. I enjoyed reading your journals, and seeing pictures of you, your cousins and mum, and your friend.

We will be praying for you here in London, Ontario, Canada!

Love,
Kathy, mom of daughter Erin, age 22, brain tumour survivor
Diagnosed Oct. 7, 2003 - large, diffuse, inoperable brain tumour - left frontal lobe
Biopsy done on Oct. 21, 2003 - oligodendroglioma grade 2
Second opinion Nov. 19, 2003 by Dr. R. Del Maestro - Montreal Neurological Institute
Total Gross Resection of tumour Dec. 18, 2003, Dr. R. Del Maestro, MNI
Final pathology results - oligodendroglioma grade 2, with 1p and 19q deletion
On Trileptal 450 mg. twice daily since September 2003
Seizure-free since craniotomy
First post-op MRI Feb. 20, 2004 - stable
MRI June 2004 - clear scan
MRI September 2004 - another clear scan
No further treatment at this time, MRI's every 3 months

Read about Erin's journey at:
http://www.caringbridge.org/canada/erin
Erin's Journal in her own words:
http://members.rogers.com/erinlovell/index.htm

Kathy Colledge
kdcolledge@rogers.com
brynnsmommy@rogers.com
Kathy <kdcolledge@rogers.com>
London, On Canada - Saturday, January 15, 2005 6:37 PM CST

Meant to say nearly 16 there which is even better
Paula <paula.puckrin@ntlworld.com>
- Tuesday, January 11, 2005 10:02 AM CST

Hi
I am a member of btuk but don't often post now.
My 16 yr old daughter had a gbm, sadly she passed away on 30/11/04.
To give you some hope though, a 12 yr old boy who was dx with the same tumour a week later is now nearly 15 and doing brilliantly.
keep fighting it is worth fighting.
www.adelesmemorialfund.org.uk
Paula Puckrin <paula.puckrin@ntlworld.com>
Redcar, UK - Tuesday, January 11, 2005 9:50 AM CST

Praying for you and all GBM patients. My mom has now survived 8 months with her GBM grade IV...hoping to beat the odds. Stay strong!!!
Lydia LoDuca-O'Callaghan <lydiahome@comcast.net>
Southgate, MI USA - Sunday, January 9, 2005 3:01 PM CST

Hi Alex Sending you lots of best wishes all the way from Australia, keep up the good fight you are doing fantastic. Hope you have great christmas with lots of presents fun and laughter. Love Penny P ( previously from Exeter Devon )
penny phillips <pennyphillips1@bigpond.com>
maroochydore, qld australia - Saturday, December 4, 2004 3:06 PM CST

Hi Lorraine, Alex and family. Keep on beating that GBM Alex, just like my Pam. Lets see if we can both break all the records and reach that cure. Loads of love
Pam and John Caulfield <johnc70@btinternet.com>
Dartmouth, Devon England - Friday, December 3, 2004 6:27 AM CST

Keep smiling Alex! Best wishes from Down Under.
Denis Strangman <string@hotkey.net.au>
Canberra, ACT Australia - Friday, December 3, 2004 6:02 AM CST

Hi Lorraine, Alex, Sammy & Family;

I am so sorry for your loss of precious Ben. Please know I am thinking of you all. My thoughts and prayers are with you all.

Sammy, please know I am an email away if you need to chat. Be gentle to yourself.

Hugs to you all.

www.caringbridge.com/va/drewb
Gina (Drew's Mom PBT) <OneAngelsMommy@aol.com>
VA USA - Friday, November 19, 2004 8:48 PM CST

Hi Alex. I hope you start feeling better soon! You are a handsome brave young man! I wish you all the best and will stop back again! thoughts and prayers, Angelique Parker

www.caringbridge.org/oh/harleiparker
angelique parker <pfloyd326@yahoo.com>
ohio - Saturday, October 2, 2004 12:06 AM CDT

Hello Lorianne, Alex, and family:
This is Rachael, Kennedy's mommy. Kennedy is 9 and also suffers from a GBM. He has been a survivor for almost 3 years now. I will be checking in from time to time also, hold your head high, you are a HERO!!! Take care little man....God Bless!
www.caringbridge.org/tx/kennedyskorner
Rachael Kimbro <Rravenscott@yahoo.com>
Iowa Park, TX USA - Thursday, September 30, 2004 5:15 PM CDT

Hi Lorraine, Alex & Family

I am very happy to see your website. Your family is in our thoughts and prayers every day. It sounds like Alex has been having quite a good time. I hope school goes well. I will be checking in from time to time. Take care and stay strong.
Gina <OneAngelsMommy@aol.com>
VA USA - Saturday, September 18, 2004 8:20 PM CDT

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