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Thanks for visiting our guestbook!(This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.)IF YOU DON'T SEE YOUR ENTRY AFTER ADDING -- PLEASE CLICK ON RELOAD/REFRESH Click here to sign the guestbook. Click here to go back to the main page. Click here to see older entries of the guestbook Stopping by to let you know that I'm still here and still praying! Ps:16:7-8: I will bless the LORD, who hath given me counsel: my reins also instruct me in the night seasons. I have set the LORD always before me: because he is at my right hand, I shall not be moved. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Saturday, December 30, 2006 0:05 AM CST Just wanting to wish you a very happy 2007!! Hugs, Tami ( www.caringbridge.com/ca/slawson ) Tami Slawson <tlslawson@aol.com> - Wednesday, December 27, 2006 5:22 PM CST Know that I'm still here praying! Lk.1:30-33: And the angel said unto her, Fear not, Mary: for thou hast found favour with God. And, behold, thou shalt conceive in thy womb, and bring forth a son, and shalt call his name JESUS. He shall be great, and shall be called the Son of the Highest: and the Lord God shall give unto him the throne of his father David: And he shall reign over the house of Jacob for ever; and of his kingdom there shall be no end. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Saturday, December 23, 2006 0:34 AM CST I just checked mapquest for the location of Erie Co and I am hoping that the nasty snow storm isn't putting a crimp in your Christmas plans. I know you all worked so hard on your church play and you have guests coming etc. Lucky that Santa is from the North Pole and used to this awful weather!! I hope all is well. I am glad that it looks like the new med is helping. I hope it isn't making you feel yucky anymore! Love, Anne Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com> Boonsboro, md USA - Thursday, December 21, 2006 7:45 AM CST Hello Nancy and family, I'm so glad the med. is helping Nolan. Your mom keeps me updated, and I have been checking Caring Bridge also. I just wanted to let you know we are keeping Nolan, and all of you, in our prayers. Merry Christmas, and a very Happy New Year to you and your precious family. Love you, Georg Ann Bowden Georg Ann Bowden <georgan56@hotmail.com> Comanche, Tx - Tuesday, December 19, 2006 7:24 AM CST Picked a verse that speaks of what happened around here a couple of nights ago. I live in Seattle, and the Lord brought "the wind out of his treasuries"! We lost power for about 14 hours and the internet for a lot more. So I'm sorry I haven't been around but know that you've been in my prayers! Ps 135:7 He causeth the vapours to ascend from the ends of the earth; he maketh lightnings for the rain; he bringeth the wind out of his treasuries. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Sunday, December 17, 2006 1:33 AM CST oa99q9p-6l8g66b-tw6q1e9d viagra http://hometown.aol.com/ph3nnnt/#1 [url=http://hometown.aol.com/vilalam/index.html#3]viagra Online Pharmacy. Order viagra Online. Free consultations.[/url] [url]http://0rz.tw/6a293#4[/url] phentermine <phentermine> phentermine, phentermine phentermine - Monday, December 11, 2006 4:01 PM CST Wish I could hear him say that! Praying so that the steroids work! It brings me great joy to be able to pray for you!!!!!!!!! Know that you're in the Lord's Almighty Hands! Phil.1:3-4: I thank my God upon every remembrance of you, Always in every prayer of mine for you all making request with joy The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Friday, December 8, 2006 8:08 PM CST I was so excited to see the new guestbook entry yesterday...was checking back tonight, hoping for an update! Hope all is WELL! Lynn's verses that she wrote are all so good...but our God is good and He gave us His Word to give us hope. Know you're all prayed for...and we're sending our Christmas wishes to all of you! Carla, Anna, and Amy <cjredhair@aol.com> Houston, TX - Thursday, December 7, 2006 8:07 PM CST When seeking comfort from Scripture I don't think the first place you'd look is Lamentations. But I was reading a section yesterday and it really touched my heart. I pray that it will give you comfort, too! You know I'm praying!!!!!!! Lam.3:22-26: It is of the LORD'S mercies that we are not consumed, because his compassions fail not. They are new every morning: great is thy faithfulness. The LORD is my portion, saith my soul; therefore will I hope in him. The LORD is good unto them that wait for him, to the soul that seeketh him. It is good that a man should both hope and quietly wait for the salvation of the LORD. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Friday, December 1, 2006 11:40 PM CST This section of Scripture is longer today but wanted to keep the complete thought of the text. This is my prayer for you: Eph.3:14-19: For this cause I bow my knees unto the Father of our Lord Jesus Christ, Of whom the whole family in heaven and earth is named, That he would grant you, according to the riches of his glory, to be strengthened with might by his Spirit in the inner man; That Christ may dwell in your hearts by faith; that ye, being rooted and grounded in love, May be able to comprehend with all saints what is the breadth, and length, and depth, and height; And to know the love of Christ, which passeth knowledge, that ye might be filled with all the fulness of God. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Saturday, November 25, 2006 0:58 AM CST Know that I'm here praying for you right now!!!!!!!!!!!!! 2Cor 1:4 Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Friday, November 17, 2006 11:27 PM CST Stopping by once again to let you know that you're in my thoughts and prayers so very much! 1Cor 15:57 But thanks be to God, which giveth us the victory through our Lord Jesus Christ. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Saturday, November 11, 2006 0:16 AM CST What a blessing to be able to pray for you! Ps.119:169-170: Let my cry come near before thee, O LORD: give me understanding according to thy word. Let my supplication come before thee: deliver me according to thy word. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Friday, November 3, 2006 11:24 PM CST  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)  BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Tuesday, October 31, 2006 10:10 AM CST BOO! We just wanted to wish you a Happy Halloween and share a joke, Why was the skeleton afraid to cross the road? It had no guts! Love from Everyone at Post Pals www.postpals.co.uk Postpals <info@postpals.co.uk> - Tuesday, October 31, 2006 7:10 AM CST May the Lord give you peace, the peace that only He can give! And yup, I check on Nolan every week to see if there are any updates. Looks like a lot of people have checked on your family this week, too! You don't have to write tons of updates, just every once in a while... Is 26:3-4: Thou wilt keep him in perfect peace, whose mind is stayed on thee: because he trusteth in thee. Trust ye in the LORD for ever: for in the LORD JEHOVAH is everlasting strength: The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Saturday, October 28, 2006 0:47 AM CDT Wow, I am tired just reading your update!! I do "nothing" as often as I can fit it into my schedule. I don't know how your children have enough time to get spoiled. I am sorry Nolan's skin is still acting up. That is so frustrating. I didn't think we were ever going to get rid of our drugs but except for steroid replacement, we are pretty well finished...of course it only took us 5 years! Well, why rush into anything? I added all new pics yesterday eve. so stop by and take a look if you have any time left. Love, Anne Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com> Boonsboro, md USA - Thursday, October 26, 2006 8:16 AM CDT Of course we're still checking on the little man! Whoever said it was bad to be spoiled anyway? Sounds like he's got it made! Debbie Moss <kdmoss1989@verizon.net> Rowlett, Texas USA - Wednesday, October 25, 2006 9:28 PM CDT Please, please, please keep updating! I check everyday. I miss you guys so much and pray for Nolan everyday. I'm glad things almost sound like "normal". Hug those babies! Michal, Kaitlyn and Emma Willis <anela300@yahoo.com> Rochester Hills, MI - Wednesday, October 25, 2006 8:43 AM CDT Well, I guess you can see who checks the website for updates! It sounds normal around your house and that's a good thing! We feel that way around here, too. We continue to pray for all of you. Maybe we will see you at Thanksgiving if you make it down here. :) Love, Carla, Anna, and Amy Carla Houston, TX - Tuesday, October 24, 2006 11:40 PM CDT Hi Nolan and family, Glad things are staying busy at your house. Wouldn't want you to be bored. Don't worry about the spoiled effect. It will wear off in a couple of years when he is a little older. Keep updating, I check every week for more great news. Jeanne and "Taylor" Blair <jbbbtbbb@cox.net> Va Beach, Va USA - Tuesday, October 24, 2006 8:05 AM CDT I stand corrected.... The violoncello, or as it is more commonly to refered to as the "cello" (pronounced Chello). It's just so close to "Chelle" that the spelling threw me! Ha!! So I'm thinking it's got to be Cooper, right? Okay, I've gotta get back to work. My 1/2 hour lunch is up...smile. Aunt Chelle Broomfield, CO USA - Monday, October 23, 2006 1:17 PM CDT I felt my message below was SO important I should post it twice...Oops! Oh well, Happy Monday! ;-) Love Chelle Broomfield, CO USA - Monday, October 23, 2006 1:03 PM CDT Mornin' Sister! Thanks to Shawn letting me know when updates occur (...smile) I check the site out periodically.... but then we live right by each other so I get the luxury of LIVE updates :-) Hope you have a great week. And by the way...who the heck is taking Chello lessons??????? I love you! Aunt Chelle Broomfield, CO USA - Monday, October 23, 2006 12:59 AM CDT Mornin' Sister! Thanks to Shawn letting me know when updates occur (...smile) I check the site out periodically.... but then we live right by each other so I get the luxury of LIVE updates :-) Hope you have a great week. And by the way...who the heck is taking Chello lessons??????? I love you! Aunt Chelle Broomfield, CO USA - Monday, October 23, 2006 12:59 AM CDT You are always in our prayers... Love Randy and Joelle PS And yes I am one of the many reading the journal. Thank you. Joelle Andree Ramsey <trramsey@swbell.net> Waco, TX USA - Monday, October 23, 2006 10:54 AM CDT Am here lifting you up in prayer right now! Ps 5:3 My voice shalt thou hear in the morning, O LORD; in the morning will I direct my prayer unto thee, and will look up. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Monday, October 23, 2006 0:03 AM CDT Know that the Lord is right there with you, holding you with His right hand! Isa 41:10 Fear thou not; for I am with thee: be not dismayed; for I am thy God: I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Saturday, October 14, 2006 0:30 AM CDT Know that I continue to keep you in my thoughts and prayers! Rom 8:18 For I reckon that the sufferings of this present time are not worthy to be compared with the glory which shall be revealed in us. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA United States - Friday, October 6, 2006 8:52 PM CDT Praying that the Lord will give you abundant grace to get through whatever lies ahead. 2Cor 12:9 And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. The Prayer Bears Website Lynn <aprayerbear@gmail.com> seattle, wa - Saturday, September 30, 2006 0:05 AM CDT Hello, my name is natasha. my friend ashley and I have been doind research on hurler syndrome. My nephew, whom i take care of, for the most part, has a disease called hydrocephalus. My aunt had hurler syndrome. Im starting to see symptons of huler syndrome in my nephew. my sister is 19 and doesnt keep up on my nepheb Braydens neurology appt's. She doesnt want to have him tested for hurler, i guess she's scared. But anyways, i read some of your stories and i just wanted to say, your son is beautiful. i will keep him in my prayers. best wishes natasha and ashley natasha and ashley <nmahan0002@aol.com> independence, ky usa - Sunday, September 24, 2006 0:45 AM CDT I'm not sure if I've ever signed your guestbook, if so it's been a long time ago. I love all the pictures! What a cutie he is!! Glad to hear that he is doing well!! www.caringbridge.org/ky/tylerdeskins Jenn Deskins <tylersmommy11304@yahoo.com> - Saturday, September 23, 2006 6:12 PM CDT Still a privilege to be able to pray for you!!!!!! Ps 27:1 The LORD is my light and my salvation; whom shall I fear? the LORD is the strength of my life; of whom shall I be afraid? The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Friday, September 22, 2006 10:55 AM CDT Hello, Just a short message to say  Love Viks  viks <viks@postpals.co.uk> - Sunday, September 17, 2006 2:38 PM CDT Continuing to lift you up in prayer. Ps 28:7 The LORD is my strength and my shield; my heart trusted in him, and I am helped: therefore my heart greatly rejoiceth; and with my song will I praise him. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Friday, September 15, 2006 11:05 AM CDT Hey Sweetie, OMG I'm so bad at signing the guestbook. Please know I'm always thinking about you and Nolan! Keeping you all in my prayers! Love and Hugs, Tami Slawson <TLSlawson@aol.com> - Saturday, September 9, 2006 6:19 PM CDT Know that you're in my thoughts and prayers so very much right now! Prov 3:5 Trust in the LORD with all thine heart; and lean not unto thine own understanding. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Friday, September 8, 2006 4:45 PM CDT What a blessing to be able to pray for you! Praying right now! Jn 16:33 These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Friday, September 1, 2006 6:11 PM CDT Continuing to lift you up in prayer! Rom 15:4 For whatsoever things were written aforetime were written for our learning, that we through patience and comfort of the scriptures might have hope. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Saturday, August 26, 2006 10:52 PM CDT Dear Sam and Nancy: We are both in tears-I never knew of this wonderful site for little Nolan. Nolan and your whole family are in our prayers as well as the church. We are hoping that Nolan and the entire family will be attending the Horn reunion this coming October. God bless you all. Mitch and Debra Thurmond Mitch Thurmond <dthurmond1@austin.rr.com> Manor, Texas Travis - Tuesday, August 22, 2006 0:26 AM CDT It was so good to see your entry tonight!! Glad you've had a good summer, but wish Nolan was able to enjoy it more. Keep us posted! We've already been in school for almost two weeks, but, like you, summer flew by. Love, Carla, Anna, and Amy Carla <cjredhair@aol.com> Houston, TX - Monday, August 21, 2006 11:10 PM CDT Praying that these words give you comfort. As always you're in my thoughts and prayers! Phil.4:6-7: "Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God. And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus." The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Saturday, August 19, 2006 0:20 AM CDT When we pray sometimes the hardest thing to do is wait. Praying for strength and courage to face whatever lies ahead, knowing that the Lord's already there waiting for you. Ps 27:14 Wait on the LORD: be of good courage, and he shall strengthen thine heart: wait, I say, on the LORD. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Saturday, August 12, 2006 0:09 AM CDT May you turn to Jesus to find the peace that only He can give, no matter what you have to face. Jn 16:33 These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Saturday, August 5, 2006 1:32 AM CDT Know that you're in my thoughts and prayers so very much right now! Isa 12:2 Behold, God is my salvation; I will trust, and not be afraid: for the LORD JEHOVAH is my strength and my song; he also is become my salvation. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Friday, July 28, 2006 11:21 PM CDT May the Lord wrap you in His loving arms and give you peace, whatever the future holds. As always, I'm praying! Ps 23:1 The LORD is my shepherd; I shall not want. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Saturday, July 15, 2006 1:40 AM CDT Know that you're in my thoughts and prayers! Isa 40:31 But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Monday, July 10, 2006 10:10 AM CDT Checking in to see how you're doing. KNow I'm still here praying! Ps 71:3 Be thou my strong habitation, whereunto I may continually resort: thou hast given commandment to save me; for thou art my rock and my fortress. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Saturday, July 1, 2006 10:47 PM CDT I hope you enjoyed your mystery trip. I can't wait to hear about it. I am sorry that GVHD is still hanging around. I remember those bouts of vomiting. They used to happen every week, then every 3 weeks, then every couple months until they did finally go away. Andrew's skin is still a little rashy every once in awhile and his eys itch. I hope you enjoy a wonderful summer. Love, Anne Anne Himes <www.caringbridge.org/page/andrewh arhimes@msn.com> Boonsboro, Md USA - Monday, June 26, 2006 11:25 AM CDT Noaln,Just stopping by to say hi and to let you know we are thinking about you.  God bless,love&hugs,Linn,Daniel & ArielThe Marrero's <gillinn7@msn.com> Port Orchard, wa usa - Sunday, June 25, 2006 11:50 AM CDT Still here praying so for you and your family! Rom 8:27 And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Sunday, June 18, 2006 6:29 PM CDT Hey, I have a poem for you Hickory, dockory, hic, the day your clock gets sick, and says, "Tock Tick," but not "Tick Tock," call the Hickory Dickory Doc  Love Viks  viks <viks@postpals.co.uk> - Sunday, June 18, 2006 11:24 AM CDT HI Nancy! I know it's been quite awhile since you've heard from me, but I do check in on Nolan and all my other little Hurler cuties when I can. Enjoy your "mystery" vacation! How fun! Though it's not a famous vacation spot, if you end up in Connecticut, look me up! LOL! Hopefully you are going somewhere more exciting than that. Great to hear Nolan is doing well and life is as normal as normal can be for you! Can't ask for more than that! Take care. Lisa Post <ltjpost@yahoo.com> Trumbull, CT - Saturday, June 17, 2006 12:15 AM CDT Know that you're in my thoughts and prayers so very much! Ps 4:1 Hear me when I call, O God of my righteousness: thou hast enlarged me when I was in distress; have mercy upon me, and hear my prayer. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Friday, June 9, 2006 7:28 PM CDT Checking in to see how you're doing and saying a prayer for you right now! Ps 50:15 And call upon me in the day of trouble: I will deliver thee, and thou shalt glorify me. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Friday, June 2, 2006 2:41 PM CDT Hey Guys! Just checking in on you again. There's a chance I might be heading out to Colorado later this summer...I'll keep you posted. It would sure be great to see you guys. Love and hugs, Marian Princess Madi's Mom <mitchem@wwdb.org> Riverside, CA - Thursday, June 1, 2006 4:14 AM CDT i had a fantastic time seeing you all in NC! thanks so much for giving me a call. i so enjoy seeing nolan's progress when he visits. i look forward to next year and hope to squeeze a trip in to colorado before then! jennifer <maddenj@med.unc.edu> chapel hill, nc - Monday, May 29, 2006 9:23 PM CDT Praying today as always! Ps 55:22 Cast thy burden upon the LORD, and he shall sustain thee: he shall never suffer the righteous to be moved. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA - Friday, May 26, 2006 3:28 PM CDT Know that I'm here praying! Isa 49:13 Sing, O heavens; and be joyful, O earth; and break forth into singing, O mountains: for the LORD hath comforted his people, and will have mercy upon his afflicted. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Saturday, May 20, 2006 0:36 AM CDT Hi Nancy & Nolie, I missed you this past week... you've been on my mind and in my heart. Welcome home. BIG (((HUGS)))! I'll call you this afternoon. Love, Aunt Chelle <mmstrayer@comcast.net> Broomfield, CO USA - Friday, May 19, 2006 10:31 AM CDT  Hugs and prayers, Patty and Jesse MPS IIIA Lysosomal Storage Diseases Support Forum Patty Taormino <wordinedge@aol.com> Balto, MD USA - Saturday, May 13, 2006 11:18 AM CDT What a blessing to be able to pray for you! Ps 119:50 This is my comfort in my affliction: for thy word hath quickened me. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Friday, May 12, 2006 11:44 PM CDT Continuing to pray...may the Lord be with you this weekend. Ps 19:14 Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O LORD, my strength, and my redeemer. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Friday, May 5, 2006 12:11 AM CDT Wanted you to know that I'm still here praying so for you! Isa 26:3 Thou wilt keep him in perfect peace, whose mind is stayed on thee: because he trusteth in thee. The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Saturday, April 29, 2006 11:33 PM CDT My thoughts and prayers are with you and your family as we head into another weekend. May the Lord be with you and give you a nice, peaceful one! The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Friday, April 21, 2006 11:02 PM CDT Nolan and family, I found your site through another cb site and wnated to stop by and say Hi. Also Happy (Late) Birthday to a little man!! My daughter also had MPS 1 and underwent an unrelated bone marrow transplant in Jan.2006. Due to other medical complications she gained her angel wings on March 8 just 5 days before her second birthday. I am so glad to hear that Nolan is doing great! I will keep you all in my prayers with all of the testing coming up. I will pray that everything goes great. Take care and I wish you and your family nothing but the best. Feel free to stop by little ^^Adriana's^^ site and read her story if you have time. It can be found at www.caringbridge.org/visit/littleangel **Hugs and Prayers** Anita, Jason, Austin, and ^^Adriana^^ Anita - Friday, April 21, 2006 8:59 PM CDT Happy Birthday Nolan! Was just stopping by and realised it was your Birthday today! WOW!!!!! What a big boy! I thought it was only yesterday you were a baby going through treatment at DUKE! SO... I hope you know you CAN have your cake and eat it too!! Love from, Madi Mitchem's Evil Aunty Shelley <OneBadAunty@sbcglobal.net> Riverside, CA - Wednesday, April 19, 2006 0:43 AM CDT Job 19:25-27: "For I know that my redeemer liveth, and that he shall stand at the latter day upon the earth: And though after my skin worms destroy this body, yet in my flesh shall I see God: Whom I shall see for myself, and mine eyes shall behold, and not another; though my reins be consumed within me" May the Lord be with you this blessed Easter Day! The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Sunday, April 16, 2006 7:50 PM CDT God died to pay for our sins on the cross so very long ago! And because of that: Rom 8:18 "For I reckon that the sufferings of this present time are not worthy to be compared with the glory which shall be revealed in us." Keep your eyes on the cross! The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Saturday, April 15, 2006 2:03 AM CDT Happy Easter Love Tina,Padraic,Amy+Sophie Tina <tina@melroseroad.co.uk> London, UK - Friday, April 14, 2006 10:33 AM CDT hey there everyone! so glad to hear that things are going well. happy birthday to cooper and nolan this month! i look forward to seeing some of you in may! jennifer <maddenj@med.unc.edu> chapel hill, nc - Tuesday, April 11, 2006 8:17 PM CDT hey chick back at you:) Sorry I haven't written in a while things are crazy with work and the constant stuff with Jeremiah. Say hey to everyone for me at Duke. I am so glad that Nolan is doing so well. I do check on you guys often. I never know when is a good time to call. But I shall call soon. Have a great trip to Brazil. Say hey to Sam and the kids and give Nolie a big hug for me. Love you guys!!! Peggy & Jeremiah Davenport, IA USA - Monday, April 10, 2006 11:07 PM CDT You're in my thoughts and prayers so very much! The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Friday, April 7, 2006 9:04 PM CDT I just wanted to stop by and say HI! I have been to your site before, but it's been a LONG time ago!! I'm happy to hear everything is going good! Nolan is such a cutie!!!! www.caringbridge.org/ky/tylerdeskins Jenn Deskins <tylersmommy11304@yahoo.com> Georgetown, KY - Thursday, April 6, 2006 5:08 AM CDT Here comes a new month! Praying so that it will go well for you! The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Saturday, April 1, 2006 11:37 PM CST Continuing to pray for you and your whole family!!!!! The Prayer Bears Website Lynn <aprayerbear@gmail.com> Seattle, WA USA - Monday, March 20, 2006 5:39 PM CST Just wanted to stop in and let you know that we are thinking of you...hope you had a great St. Pattys Day. In Love & Prayer...Eleasha <eleasha@cox.net> www.caringbridge.org/va/cody, - Saturday, March 18, 2006 7:11 AM CST God Bless you all in your journeys. Susan Stephens <camille8792@hotmail.com> Northglenn, CO - Saturday, March 11, 2006 10:36 PM CST Know that you're in my thoughts and prayers so very much!  The Prayer Bears Website Lynn Seattle, WA USA - Saturday, March 4, 2006 11:26 PM CST Hi Ramsey Fam-- Always love reading the updates. We saw some of the stuff about Nolan on the web link you sent us for the hospital fund raiser. You guys have such big hearts and we really admire how much you are involved in giving to others. Nancy, hope you have a fun and safe trip to Brazil...good luck Sam!! We're not going back to Duke for the Rainbow Walk this year, but Joe and Richelle will be there, representing the Madison's. Looks like you guys will be there after the walk anyway. Guess we'll have to come up with an alternate plan to see you guys some time this year. Love you and miss you all! Mike, Marian and Mikey Princess Madi's Family <mitchem@wwdb.org> Riverside, CA - Saturday, February 25, 2006 0:44 AM CST Don't worry about the pullups. Taylor still has accidents at night and he just turned 7. "Regular" kids have accidents too. So let Nolan take his time catching up in this area. HE WILL! He looks wonderful in the pictures. Take care and have a great weekend. Jeanne and <jbbbtbbb@cox.net> Va Beach, Va USA - Friday, February 24, 2006 8:12 AM CST What a blessing Nolan is. I believe God has, and will continue, to use him in mighty ways. Nolan, and family, are in my prayers. L. Fortney - Monday, February 20, 2006 9:41 PM CST Continuing to keep your family in my prayers. The Prayer Bears Website Lynn Seattle, WA USA - Saturday, February 18, 2006 9:13 PM CST Hi! Can you believe it's almost Valentine's Day? I can't! I hope you and your family have a wonderful week.  MJ MJ <TWEETYROLL88@aol.com> - Monday, February 13, 2006 10:13 AM CST Sending up prayers to the Great Physician and only Savior on your behalf! The Prayer Bears Website Lynn Seattle, WA - Friday, February 10, 2006 10:23 AM CST Still here checking in on you and lifting you up in prayer! The Prayer Bears Website Lynn Seattle, WA - Friday, February 3, 2006 11:20 AM CST Hope your Valentine's Day is full of fun!  Love, MJ MJ <TWEETYROLL88@aol.com> - Sunday, January 29, 2006 10:37 AM CST Couldn't stop thinking about you guys and was so happy to see an update when I checked in! Glad the trip was such a huge success! Can't wait to see the pictures. We've decided we're not going back for the Rainbow Walk this year...probably will go again next year. Sure going to miss seeing everybody! We'll pray that Nolan's surgery will be able to wait til Summer. We miss you guys like crazy! Love and hugs!!! Mike, Marian and Mikey (Princess Madi's Family) www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Friday, January 27, 2006 10:51 AM CST Checking in...letting you know you're still in my thoughts and prayers! The Prayer Bears Website Lynn Seattle, WA - Friday, January 27, 2006 10:25 AM CST So glad to see an update...had been checking to see how the trip to DisneyWorld went! Sounds like everyone had a marvelous time. Will add my prayers to the many going up that Nolan's surgery will wait until summer. Carla <cjredhair@aol.com> - Thursday, January 26, 2006 9:23 PM CST We just got back from Make A Wish also! When did you go?? We were there 1/13 - 1/19. It was awesome. If you where there the week after us, then you got the good warm weather LOL. We had one 80 degree day and the rest were warm sweatshirt and jacket days! We were the family of 7 with the wild haired three year old running around the Peppermint House and the seven year old desperately trying to line dance with Shamu. LOL I'll pray that Nolan's surgery will be held off until summer! In our thoughts and prayers, Renee www.caringbridge.com/ny/my2angels <rcurk@aol.com> - Thursday, January 26, 2006 8:52 AM CST Stoppong by to let you know I'm here praying so for your precious child! The Prayer Bears Website Lynn Seattle, WA - Friday, January 20, 2006 11:00 AM CST Hello, just wanted to say hello! Did you go to Disneyland? I check in on your family all the time and hope things are well. Looking forward to an update! Cathy Peters <www.caringbridge.org/canada/isobel jacon@shaw.ca> - Sunday, January 15, 2006 9:52 PM CST Stopping by to let you know you're in my thoughts and prayers! The Prayer Bears Website Lynn Seattle, WA - Saturday, January 14, 2006 4:47 PM CST Hello There! I'm sorry I haven't stopped by in awhile. I've been busy with homework. What have you been up to? I hope you are doing well and have a great week.  MJ http://www.caringbridge.com/ny/mjpurk - My Journal http://www.mjthesmaqueen.com/ - My New Website MJ <TWEETYROLL88@aol.com> - Thursday, January 12, 2006 11:26 PM CST Just stopped in to say hi and hope you had a wonderful Christmas and New Years. Praying Nolan is doing great! http://www.geocities.com/calebwaddell Kelly Waddell <kellywaddell@hotmail.com> Hernando, MS USA - Wednesday, January 11, 2006 1:39 PM CST Hi Nolan and family sending best wishes for a great Holidays .. You are always in our thoughts and prayers sweetie.. God Bless you. Brenda/Angel_Wings Brenda Ball Dec.26th 2005 8:01 pm <brball12003@yahoo.com> whitley city, ky usa - Monday, December 26, 2005 6:53 PM CST Praying for you so on this Blessed Christmas Day! http://cards.webshots.com/ecard/pickup/109858809RhApxi Lynn <lworley416@yahoo.com> Seattle, WA - Sunday, December 25, 2005 8:21 PM CST Merry Christmas... In Love & Prayer...Eleasha <eleasha@cox.net> www.caringbridge.org/va/cody, - Sunday, December 25, 2005 7:47 AM CST Happy Holidays to you! Candles are a gift of light, A tiny sun, a bit of star. No other dancer in the night Dances with such sheer delight, Little souls serene and bright, Each a glimpse of what we are Shining innocent and pure. ~Author Unknown~ Since I didn't have enough cards to send one to each of you, check out Your Holiday Card from MJ  Hugs, MJ http://www.mjthesmaqueen.com/ MJ <TWEETYROLL88@aol.com> - Monday, December 19, 2005 4:48 PM CST Hello! I thought I would share this beautiful website with you and your family. Merry Christmas to My Friend! Wishing you and yours a wonderful week!  MJ http://www.caringbridge.com/ny/mjpurk MJ <TWEETYROLL88@aol.com> - Saturday, December 10, 2005 0:30 AM CST Hello again, I wanted to wish you and your family (a bit early) very happy and healthy holiday season. I'll be back again very soon! Happy, warm hugs coming your way!  MJ http://www.our-sma-angels.com/Margaret MJ <TWEETYROLL88@aol.com> - Saturday, December 3, 2005 1:05 AM CST What a surprise when Mike and Marian sent us the e-mail about Nolan being on the news! We were so glad to see the progress he has made. It's obvious that God continues to bless your little family. We will be praying for you. May you have a blessed Christmas season. Judi and Ray Mitchem (Princess Madi's Grandma and Papa) Judit h and Ray Mitchem La Mirada, CA 90638 - Thursday, December 1, 2005 11:42 PM CST Hi, my name is Kristen and I have been a PCA and family friend for a boy who also has Hurler's. It always amazes me how much Hurler's kids all look like cousins...but i had to do a double take when i looked at the picture of Nolan in his glasses...he looked just like Michael! Hurler's babies have a quality in them unlike i have ever seen in anyone, they make an impact in the lives and hearts of everyone they meet. Kristen Myking <Deebo5@aol.com> Apple Valley, MN 55124 - Wednesday, November 30, 2005 3:21 PM CST Wow Nolan---you're a TV STAR!!! I saw the clip of you on the news...you look so handsome! Sure wish we could be there to give you some big ol' hugs! You are one of the things we are thankful for this year! Missing you all! Love and hugs, Marian and Mike www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Wednesday, November 30, 2005 0:15 AM CST Hi! Just wanted to wish you an your family a very happy Thanksgiving! Have a great day and I hope you enjoy yourself with your family!  If you send me a picture of you and your family or just you, I will add it to my page next week!  MJ http://www.caringbridge.com/ny/mjpurk MJ <TWEETYROLL88@aol.com> - Sunday, November 20, 2005 10:01 AM CST hey there. sorry i haven't kept in touch well recently. i'm glad to read that things are going so well. i loved the pictures of nolan's first day of school - how cute! have fun in maui! jennifer <maddenj@med.unc.edu> - Friday, November 18, 2005 11:29 AM CST Hope you had a wonderful trip together. The pictures are just terrific!! Nolan looks great!! Hugs from across the ocean, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Monday, November 14, 2005 4:26 PM CST Hi! How are you? I can't believe it is already November! It has been nice and warm here so I am not ready for Thanksgiving. Hope you are able to enjoy the upcoming holidays! Have a great week!  MJ www.mjthesmaqueen.com MJ <TWEETYROLL88@aol.com> - Saturday, November 12, 2005 6:51 PM CST Hi Nolan and family, hope your having a good day today, just wanted to stop by see how you are doing? You are always in our prayers. God Bless you all..brenda/angel_wings brenda ball nov.7th 2005 6:55pm <brball12003@yahoo.com> whitley city, ky usa - Monday, November 7, 2005 5:51 PM CST We are so glad that Nolan's news is good news! Hope you had a renewing trip to Maui. Give everyone a hug from us. Love, Carla, Anna, and Amy Carla Redhair - Monday, November 7, 2005 7:04 AM CST ALOHA!!! Welcome back. I bet your trip was awesome...nothing like a little time away to make you miss home though, huh? It was funny that you posted on Madi's web site today...earlier today I was addressing an envelope to you...I'm sending you a copy of a booklet I came across that I really enjoyed and wanted to share with you. Your ears must have been burning. Glad you guys are back safely and we can't wait to hear that you're making plans for another vacation...TO CALIFORNIA!!! Love and hugs, Marian, Mike and Mikey Princess Madi's Family www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Wednesday, November 2, 2005 11:51 PM CST Hi! Don't forget to e-mail me a picture of you in your Halloween costume!!  MJ <TWEETYROLL88@aol.com> - Friday, October 28, 2005 3:25 PM CDT HiNolan, just stopping by to see how u are doing..You all are in my prayers daily God Bless all.. sending hugssss Brenda/Angel_wings Brenda Ball Oct. 27th 2005 8:27 pm <brball12003@yahoo.com> whitley city, ky usa - Thursday, October 27, 2005 7:23 PM CDT  Wanted to stop by and check on you guys. Glad to hear that all is well. Glad to hear that school is going good. Have a great time in Maui. Keeping all in prayers and thoughts. God Bless.. Prayers and Hugs, LeAnn LeAnn Mooneyham/Angel_Wings <angel4God352000@yahoo.com> Baxley, GA United States - Wednesday, October 26, 2005 8:53 AM CDT Hi Nolan, just wanted to drop in see how you are doing..You are in our hearts and our prayers daily . God Bless You and your family..Keep your eyes on Jesus he is our strenght.Brenda/Angel_Wings Brenda Ball Oct. 25th 8:15pm <brball12003@yahoo.com> whitley city, Ky USA - Tuesday, October 25, 2005 7:11 PM CDT WOW!! I can't believe that the little man in your pictures is the same little boy I helped take care of at Duke!! Nolan you look AMAZING!! Im so glad things are going well for all of you. Have a great time in Maui and fun in Disney. Thanks for keeping us posted. Jennifer Walker, RN <d1walker@bellsouth.net> Raleigh, NC - Tuesday, October 25, 2005 8:13 AM CDT Sam and Nancy - you guys have been on my heart lately so I thought I would check in on Nolan's web page. What a blessing to see your beautiful family! So happy to hear how much Nolan loves school. God is good! Blessings and Love, Derek and Becky van der Merwe (Fields) Rebecca van der Merwe <yeshua@absamail.co.za> Rustenburg , South Africa - Sunday, October 23, 2005 2:40 PM CDT  MJ <TWEETYROLL88@aol.com> - Saturday, October 22, 2005 0:00 AM CDT Dear Ramsey Family, I'm glad to hear that all is well! Nicole Louisville, CO United States - Wednesday, October 19, 2005 6:43 PM CDT Happy Halloween! I know it is early but I wanted to make sure I stopped by before Halloween. I hope that you have a great Halloween! If you are looking for some Halloween fun, visit http://www.mjthesmaqueen.com/indexSMG  Love, MJ MJ <TWEETYROLL88@aol.com> - Tuesday, October 11, 2005 11:24 PM CDT Hello Family :-) You're on my mind today so I thought I'd tell you! I love you and will talk to you soon. Love, Aunt Chelle Broomfield, CO USA - Tuesday, October 4, 2005 10:57 AM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Tuesday, October 4, 2005 1:28 AM CDT To: Nolan & Family!:  Meghan & Nater Gapa www.caringbridge.org/ny/naters_page <gaphouse@yahoo.com> - Monday, October 3, 2005 5:49 PM CDT Hello from Western Canada. Thank you for sharing your son's life with us. I'm 54 years old. I grew up in Belfast Norther Ireland. I had a little brother, gregory, who had Hurler's Syndrome, although in the 1960s it wasn't known as Hurler's Syndrome. Unfortunately, he died when he was 6 years old. That child brought so much love to our family. But there were struggles, too. I remember getting into fights with neighbourhood kids ho made very unkind comments about Gregory's appearance. Not sure why I'm writing to you. Your web page brought back so many memories. I hope your son continues to do well. Frank Gribbon <fgribbon@hotmail.com> Regina, Canada - Friday, September 30, 2005 11:20 PM CDT  Love Always BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Thursday, September 29, 2005 3:08 PM CDT Thank you for signing our guestbook. It was good to hear from you after such a long time. Hope everything goes well with Nolan. Kisses to all the family! Savvas-Marianna-Dionyssos <ermiskub@yahoo.gr> Lamia, Greece - Wednesday, September 28, 2005 2:42 PM CDT Finally!...my guilt trip worked! LOVE the pictures!!!!!!!! Of course I'm sitting here crying my eyes out as I'm looking at them. What a perfect family! Sam and Nancy, you guys both look awesome! Nice job with the diet and exercise thing! The three kids all look so happy, and I'm so excited 'Baby Nolan' is getting to attend pre-school. What WILL you do with yourself Nancy? Hope the Make a Wish trip is a huge success...are you SURE you don't want to have them send you to Disneyland? No hurricanes in sunny Southern California...and then we could see you again. Miss you guys a bunch! Thanks again for posting the new pictures. Love and hugs, Marian, Mike and Mikey Princess Madi's Family www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Monday, September 26, 2005 2:07 PM CDT Beautiful pictures!! Nolan, you look great!! Love, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Sunday, September 25, 2005 4:20 PM CDT I love your update and the pictures are fantastic!! Thanks for signing our guest book. I read your page to Jeff and he laughed and said that sounds like somebody we know. Andrew is so good about his glasses and hearing aids but the minute he gets in the car after school he strips out of both. Hope to hear more about school soon. Love,Anne Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh> Boonsboro, Md USA - Friday, September 23, 2005 7:36 PM CDT Hi Nolan! I'm just stopping by to say hi and let you know that I'm thinking of you! I hope you have a GREAT week! God bless and *warm hugs* ><>†<><  *Jennifer C* <jenniferc@ilovetocolor.com> Eugene, OR USA - Monday, September 19, 2005 0:06 AM CDT The pictures are great!! What a wonderful news that Nolan is starting with pre-school. He looks very sweet with his backpack! Love, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Monday, September 12, 2005 3:50 AM CDT Hi, Ramseys!! So glad to hear the news about preschool! Thanks for adding the new pictures...what more could you ask for than those three precious smiles?? They are heaven-sent!! Love, the Redhairs Carla <cjredhair@aol.com> Houston, TX USA - Sunday, September 11, 2005 8:18 AM CDT Hi Friends: I'm SO sorry that it has been so long since I have visited you! I had a very busy summer ,including visits to Ohio, New Jersey, Connecticut, and Virginia Beach. How was your summer? I hope you are feeling well and if you are not, GET BETTER SOON! I will be back soon and will try to sign at least once a month! My banana, Annie Bannie, wanted to say hello to you!  Big hugs, MJ MJ <TWEETYROLL88@aol.com> - Sunday, September 11, 2005 0:19 AM CDT Miss you all! Pix? Come on...Dec. '04 was a really long time ago! Lovies, Marian www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Wednesday, September 7, 2005 4:37 PM CDT  www.postpals.co.uk Liz Cook - Postpals Brighton, England, UK - Sunday, September 4, 2005 9:02 AM CDT I have not checked the site lately but I am so glad that to read that Nolan seems to be doing well. God does answer prayers. Preschool!!... how great!!! Stephanie Beck <smbeck@surry.net> Mt Airy, NC` - Wednesday, August 24, 2005 11:47 AM CDT Still checking in!!! And STILL waiting for those NEW pictures!!! Luckily I still have the poster you made at Duke of 'Baby Nolan' so at least Mike and I get to see current pictures, but what about the rest of his fans? Maybe one day I'll actually get around to returning that poster to you, but for now it sits proudly in my room right next to Madi's. Love you and miss you! Marian, Mike and Mikey Princess Madi's Family <mitchem@wwdb.org> Riverside, CA - Tuesday, August 23, 2005 2:19 AM CDT  BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Monday, August 22, 2005 1:15 PM CDT Hi Nolan, Glad the rash is under control. Soon school will be here and you will be having the best time. Take care and God bless, Jeanne and "Taylor" Blair <jbbbtbbb@cox.net or caringbridge.org/va/taylor_blair> Va Beach, Va USA - Sunday, August 21, 2005 5:27 PM CDT Another Angel is with God and our Heavenly Family... We are praying for Cody's family. We love you Randy, Joelle and Bernard. Nolan, Chopin and Schwartzer say HI... Joelle Andree Ramsey <trramsey@swbell.net> Waco, TX USA - Saturday, August 20, 2005 6:02 PM CDT It was great to hear Nolan's story and update. Folks like yourselves really are a tremendous testimony to how God's people can be faithful(although sometimes difficult)in the midst of circumstance. Nolan's pictures and that smile are truly reflective of Matthew 5:14., "A city on a hill cannot be hidden". Johnny Hawkins <jhawkins@swrisk.com> Dallas, TX USA - Friday, August 19, 2005 1:36 PM CDT Nancy, I just had lunch with Grandpa, aunt pat and your mom on saturday. She told me about your baby nolen. My how time flies and your family has things going on I never knew about. Your mom sent me the link. Since mom died I have not kept in touch with the wilson side much.I will be praying.We have an awesome God! You have a beautiful family. Blessings from cousin.. Selina(Jurden)Anderson Selina Jurden Anderson <sdjones51@hotmail.com> Paris, Tx USA - Tuesday, August 16, 2005 8:27 AM CDT Dear Ramseys, I am glad to hear that Nolan is doing well after surgery. I hope that he will get over his fear now that they shouldn't be digging around for veins. Andrew too has developed a real fear of dr. I hope that you will be able to get someone to do the photopharesis if that is what they think will help the GVHD and then allow you to do the back surgery more comfortably. I wish none of it was necessary and that it was just smooth sailing. Keep us updated. Love, Anne Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh> Boonsboro, Md USA - Tuesday, August 9, 2005 10:04 AM CDT   Love Viks viks <viks@postpals.co.uk> - Monday, August 8, 2005 9:00 AM CDT Hello my dearest Ones, We miss you... We love you. We are so blessed to have all of you... Nolan, Chopin the dog and Schwartzer the cat are asking about you ... Much love Joelle, Randy and Bernard Joelle <trramsey@swbell.net> Waco, TX USA - Saturday, July 30, 2005 8:43 AM CDT Hi Nolan and Fam-- Thinking about you and wanted to say hi. Sure miss that little smile of Nolan's. I sure enjoyed getting to see all of you over Spring Break, and at Duke, but now it's been too long again...when will we get to see you next? How 'bout another trip to CA for the last part of summer? Hee hee. (I wish!) We just want you to know that we love and miss you and that we're praying that God will continue to work miracles for Nolan. Hugs from CA, Marian, Mike and Mikey The Mitchems <mitchem@wwdb.org> Riverside, CA - Wednesday, July 20, 2005 1:42 PM CDT Even though we have not talked much in awhile know that I am still thinking of you. I am praying for you and your little guy. Hopefully we can talk again soon. Heather Buchanek <mrsbu@comcast.net> Denver, CO - Wednesday, July 13, 2005 9:52 PM CDT Nancy and Family, We so enjoyed seeing you all this week. I am hoping we get to laugh a bit more at the next movie. You are frequently on my mind and in my prayers, and I miss your phone calling me by accident. I will work on making my phone call your more offten. I hope that you have a great time on the remainder of your trip. Love, Tina Tina Stockton <musicoffice@fbc-katy.org> Katy, Tx USA - Thursday, June 30, 2005 4:57 PM CDT Hey guys, I checked your site a few days ago and thought about leaving a journal entry; but you know how things go, the phone rings, an email comes in, yada, yada, yada. Anyway Dustin just specifically asked me to "check the Nolan site" and he wanted me to print the Halloween picture for him. It is so cute. We hope that the GVS is getting better and that things will go well with the surgery. We still think of you guys often and hope to see you again sometime soon. Have a wonderful summer! The Anthony's Kim, Mark, Dustin and Brandon <kanthony1@san.rr.com> San Diego, CA USA - Saturday, June 25, 2005 10:45 AM CDT Hi Nolan, Hope the GVHD soon settles. Thinking of you today.  Love Sue xxxxxx       www.postpals.co.uk Sue <orangejammies@hotmail.co.uk> Colchester, Essex, England - Wednesday, June 15, 2005 11:31 AM CDT I am sorry about the GVH and the need for surgery. I would gladly share some of our heat and humidity with you. I am glad that you have a nice summer planned. I will keep checking in. Keep us updated. Love, Anne Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh> Boonsboro, Md USA - Sunday, June 12, 2005 3:20 PM CDT Hi Nancy, I'll be your friend, Girly Q Pie!! We need to get together soon. Summer is here and we are free every single day! Love You, Tracie Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Tuesday, May 31, 2005 7:55 PM CDT Just a note to let you know we always check in on Nolan. We are happy to hear he continues to do well. Our prayers and thoughts are always with you... With love, Claudina (Caterina's mom) <claubonetti@aol.com> Durham, NC - Thursday, May 26, 2005 10:14 PM CDT We've been checking on you often and you are always in our prayers. We're so glad to hear about your progress! Keep going little man! Michal, Kaitlyn and Emma Willis <anela300@yahoo.com> Rochester Hills, MI USA - Monday, May 23, 2005 6:39 PM CDT I'm glad to hear about Nolan's progress. It was great to see you all at the zoo a while ago. Cooper and Mackenzie are getting so big and Nolan's smile is just priceless. You can't help but feel good around that sweet boy. I'm sorry to hear he will need surgery again. We miss seeing you all since we moved, but you continue to be in our thoughts and prayers. Katie Boulder, CO USA - Friday, May 20, 2005 12:31 AM CDT Hey, Nolie, great job at your Duke visit! Nice to hear you found a new playmate as well! Best wishes as always! Lisa Post <LMPOST@cox.net> - Thursday, May 19, 2005 6:23 PM CDT Glad to hear Duke went so well. Keep up the good work, Nolan! You've come a long way! Nancy, next time you're in town, call me and we'll go to lunch! Debbie Moss <kdmoss1989@comcast.net> Rowlett, TX USA - Thursday, May 19, 2005 11:34 AM CDT Hello Nolan and Family, it's been a while since I've signed the guestbook. I am glad to hear that things went well at Duke. I check on Nolan every week to see what's going on. I know how you feel about being home with no one to talk to during the day. You can always give me a ring if you get desperate enough to pay a charge for it. Anyway, I hope you all enjoy your summer!!! Aaron's Mom CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net> Belleville, IL USA - Wednesday, May 18, 2005 3:15 PM CDT You guys are awesome to get the whole visit done in one day. INCREDIBLE! I know little guy was tired though. Just the developmental review wipes them out. Sounds like things are really started to progress. Keep up the good work. Yes we are still reading the journal weekly. You lift our spirits. Thanks, Jeanne and "Taylor" Blair <jbbbtbbb@cox.net or caringbridge.org/va/taylor_blair> Va Beach, Va USA - Wednesday, May 18, 2005 6:23 AM CDT Nancy, Sam and kids: I have not been here for a while so I wanted to check in and see how things were going. Sounds like you might be a little lonely right now. I'll pray that God will bring you just the right friends that you need. I think of you often and wish I could see you and your sweet family. Our thoughts and prayers are always with you. Love, Cindy and Ward and the girls <cdscobee@msn.com> Scotch Plains, NJ USA - Tuesday, May 17, 2005 3:56 PM CDT I miss you too sister! You know you can still count on me for support - it's just more "tailored" hours...smile. I'M KIDDING! Work or not, I'm always just a phone call away. Come on, you know that song... Winter, Spring, Summer or Faaaallllll, all you gotta do is calllll... and I'll be there, yeah, yeaaahhh... you've got a friend....smile.... God brought us all the way from Texas to Colorado in His perfect timing. I know it wasn't coincidence that we arrived directly following Nolie's return from Duke. And it wasn't coincidence either that I was laid-off from my old company only 5 weeks after I moved!*! I remember how scary it was for me -- I had NEVER not worked! But God had a new role for me to fill. A full-time job as Aunt Chelle! I did a lot of growing in that role and got to fill in all the space that existed between my niece, my nephews, Sam and you... space caused from years of living so far away! And my kids get the privilege of growing up and really knowing their cousins. It's not just about the holidays anymore! How beautiful is that?! What a wonderful experience it's been - and still is!! I truly believe that we are all placed exactly where we need to be, when we need to be there. A workday for me won't change that! I'm still filling my old role as Aunt Chelle, but I have an extra door open to walk through. Yes, some things will inevitably change but the important stuff will forever stay the same. I love you. And hey.... I'll talk to you tonight sistah!! ;-) Aunt Chelle <mmstrayer@comcast.net> Erie, CO - Tuesday, May 17, 2005 1:11 PM CDT Thank you for the update! We just want to let you know that we are thinking of you and Nolan! Love, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Monday, May 16, 2005 2:58 PM CDT Your entry speaks to my heart. Some days Andrew seems like he has made such gains and other days I will see another 5 year old and wonder what I was thinking. It is indeed a waiting and hoping game. I am glad that you have been granted a Make a Wish. We asked for wonderful play equipment with a tree house and play house and a fenced in yard to keep him safe while he enjoys it. It has things on it that will have a PT benefits for years to come. I can't wait until it is up. I hope your Duke visit went well. I enjoyed reading Laney's page and hearing that you met up. It is so nice to see a friendly face who knows what you have been through. Love, Anne Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh> Boonsboro, Md USA - Wednesday, May 11, 2005 12:01 AM CDT Hello Nolan and family. We had a pleasure meeting you in Durham. Hope that you all are well. Sending hugs and kisses to "Norman" from Laney! Love, Beth Anne caringbridge.org/tn/laney Beth Anne Biggs <laneybug02@charter.net> Rogersville, TN - Wednesday, May 11, 2005 9:26 AM CDT Happy Mother's Day, Nancy! Can't wait to hear the rave reviews from Duke. We continue to check in on Nolan's progress and how the rest of the family is doing. Thanks for posting and keep us all updated! Carla Redhair <cjredhair@aol.com> Houston, TX - Saturday, May 7, 2005 10:45 PM CDT Hi Nancy and Sam....I will be praying that all goes well during your trip to NC! Please know that I continue to check in regularly and am so glad that Nolan continues to do well - what a cutie!!! Looking forward to the results of your check-up! April Kreger Katy, TX usa - Tuesday, May 3, 2005 8:07 AM CDT Just a note to let you know we continue to check on you all and Nolan. We hope we have a chance to meet you while you are here in May. It is always so rewarding to share our children's experiences and to watch those who have tread this path before us come back over the years. Wishing you much luck for all your appointments and a joyous Springtime! With warm regards, Claudina (Caterina's mom) www.caringbridge.org/ny/caterinamarcus <claubonetti@aol.com> Durham, NC - Wednesday, April 27, 2005 8:00 AM CDT happy belated birthday nolan! happy birthday sometime this month to cooper too. i look forward to seeing some birthday pictures online soon! jennifer chapel hill, nc - Monday, April 25, 2005 9:28 PM CDT It's been a while since I've checked in. I'm so glad to hear everything is going well with Nolan and the rest of you. Have a safe trip to Duke. You'll be in my prayers. Kim Barron <kim.barron@ibsa.com> Rowlett, TX USA - Thursday, April 21, 2005 4:01 PM CDT Happy Birthday, little Nolan. We love you Randy, Joelle and Bernard Chopin, the Dog and Schwartzer the Cat Joelle <trramsey@swbell.net> Waco, tx usa - Monday, April 18, 2005 8:50 AM CDT nolan's updated pictures are so adorable-how great to see him with all that hair! happy belated transplant anniversary. i can't believe it has already been two years. it is so wonderful to read about his progress. i hope that nolan and cooper have very happy birthdays this month! i miss you all and keep you in my thoughts. hopefully, i will be able to catch up with you in may. please let me know the dates! jennifer <maddenj@med.unc.edu> chapel hill, nc - Saturday, April 9, 2005 2:09 PM CDT Hi Nolan! I'm just stopping by to say hi and let you know that I'm thinking of you! I hope you have a GREAT week! God bless and *warm hugs* ><>†<><  Lighting Children’s Lives Caged Kids Raise Awareness *Jennifer C* from Lighting Children’s Lives, Caged Kids & Friends of Allie/Raise Awareness <jenniferc@ilovetcolor.com> Eugene, OR USA - Wednesday, April 6, 2005 2:40 PM CDT Hi my friend!! Did you know that  ???I hope that you had a very happy Easter! I got to go to Ohio and spend time with my family and friends. I put pictures up on my website so check it out , if you want to. I'm so glad that  Love and warm Spring hugs, MJ MJ <TWEETYROLL88@aol.com> - Sunday, April 3, 2005 11:01 AM CDT  Angel Lady from Smile Quilts - Sunday, March 27, 2005 8:24 PM CST  HAPPY EASTER LOVE WWW.POSTPALS.CO.UK  Post Pals <info@postpals.co.uk> - Friday, March 25, 2005 1:38 PM CST Hi Nolan Baby!!! Way to kick the rotovirus!!! Now we pray for a successful wean - socialization, here we come!!! Please feel a BIG HUG from me!! Love, Tracie Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Wednesday, March 23, 2005 8:56 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Thursday, March 17, 2005 3:39 PM CST Hi: I know that I am early, but I wanted to wish you and your family a  &  I hope you enjoy your Spring!! Love, MJ MJ <TWEETYROLL88@aol.com> - Thursday, March 10, 2005 9:47 AM CST Hello: Nolan looks great. Glad to hear things are going well. Jack is doing well also. We are hoping he will be off of meds here in the next couple of weeks. The weaning has been going well. We too are pumped for Jack to start preschool. The thought of them doing something so "normal" is exciting. We have enrolled Jack to be on a three year old soccer team. Since it is outside, we thought it would be o.k. He is obsessed with sports of all kind. It will be interesting to see how he interacts with the other kids. We will keep Nolan and your family in our prayers. David, Gina, Noah & Jack Shuler David Shuler <davidshuler@sbcglobal.net> Springfield, MO - Monday, March 7, 2005 1:54 PM CST Hey Nolie , This is your Uncle Eric you are doing so good, you got that Ramsey fight in you, don't you. It is good to see that you are going to school soon. I can't wait to see you and your brother and sister.Have your mom and dad give you ,Cooper and Boo a big hug and kiss from me and your Aunt Laura.Love you guys Eric P. Krueger <ekrueger@qualitec.com> - Monday, February 14, 2005 3:44 PM CST Happy Valentines Day . I hope your day is extra special. Jesus loves you,Monica Monica Martin <monie48m@lycos.com> Livingston, Louisiana USA - Monday, February 14, 2005 3:31 PM CST The New Pictures are Wonderful... Thank you for posting them... We love all of you and wish you a Happy Valentine Day Randy, Bernard and Joelle Chopin the Dog and Schwartzer the cat... Joelle Ramsey <trramsey@swbell.net> Waco, TX USA - Monday, February 14, 2005 2:24 PM CST It has been quite some time since I have signed in here, but you are not forgotten. I continue to keep you in my thoughts and prayers. It sounds like things are going well. Blessings to you. Khalita Duke Peds BMT Aplastic Anemia My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC - Sunday, February 13, 2005 6:36 AM CST  I hope you have a very happy Valentine's Day! Love, MJ MJ <TWEETYROLL88@aol.com> - Sunday, February 13, 2005 0:06 AM CST Hi Nolan, You look great!!! Soon you will be having the best time getting ready for school. Hope the wean goes well. Take care. Jeanne and "Taylor" Blair <jbbbtbbb@cox.net or caringbridge.org/va/taylor_blair> Va Beach, Va USA - Saturday, February 12, 2005 5:58 PM CST We DID enjoy the pictures!! Nolan looks great and sweet as ever! We hope he is soon able to join his peers in school. We are sure that he will like that as much as Harmen does! Love to you all, Harmen, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Thursday, February 10, 2005 9:58 AM CST Dear Nolan and family, We are finally back on line again, and RachelJoy's website is back up too. I'm trying to get around and catch up with our cyber buddies. Know that we continue to pray for you. Stephanie & RachelJoy <mom2rj@comcast.net> - Friday, February 4, 2005 7:04 PM CST Hi Nolan and family! We hope that you get better soon. We check on you very often. Jack is doing good. These boys are such a miracle! Maybe we will see you at Duke. We go back May or June. www.caringbridge.org/jackshuler/mo gina and david shuler <ginashuler@sbcglobal.net> springfield, mo usa - Friday, February 4, 2005 10:37 AM CST Hi Nolan! I hope you are feeling better and your virus is gone! Lisa Post <LMPOST@cox.net> - Thursday, February 3, 2005 3:50 PM CST Hi Nolan, That rotovirus stinks!!(Literally - now, that's not funny). I hope you're out and feeling better soon - your mommy doesn't need anymore scares... We miss you - and ARE planning to see you when you get better!! XXOO, Tracie and Cam Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Tuesday, February 1, 2005 3:31 PM CST I know im early, but Happy Valentines Day  Love Viks from Post Pals viks <viks@postpals.co.uk> - Tuesday, February 1, 2005 10:37 AM CST Hi !!!!  Mickey and I wanted to say HAPPY FEBRUARY!!!! I hope you are doing well today. Big hugs to you and your family! Love,  http://www.caringbridge.com/ny/mjpurk - My Journal http://www.our-sma-angels.com/Margaret/ - My Original Website http://www.mjthesmaqueen.com/ - My New Website MJ <TWEETYROLL88@aol.com> - Monday, January 31, 2005 9:24 AM CST hey girlfriend thanks for the entry on Jeremiah's web page. I hope you are right about the walking and talking thing. You seem to have a better link with the guy upstairs so maybe he will listen to you. Miss you all terribly. Your mom e-mailed me about Nolan and of course I freaked. I am so glad it wasn't anything really terrible. Nolie has been doing so well. Just a few more months and we will all be there at the infamous 2 year make it or break spot. Still thinking of coming to see you this summer. Talk to you soon Love YA! Peggy Peggy Fulton <pegakamogan2@aol.com> Davenport, IA USA - Sunday, January 30, 2005 10:30 PM CST Little Nolan, We are sending you a lot of kisses. Randy, Joelle and Bernard Joelle <trramsey@swbell.net> Waco, TX USA - Friday, January 28, 2005 5:49 PM CST Hi Nolan! I'm just stopping by to say hi and let you know that I'm thinking of you!! I hope you have a great week! God bless and *warm hugs* ><>†<><  Lighting Children’s Lives Caged Kids Friends of Allie *Jennifer C* from Lighting Children’s Lives, Caged Kids & Friends of Allie <jenniferc@ilovetocolor.com> Eugene, OR USA - Thursday, January 27, 2005 12:02 AM CST Just had to stop by and tell you that Nolan is absolutely a cutie pie! You are in my thoughts and prayers. Shelley Willson *Friends Of Allie* <shelleyburnette@hotmail.com> Loveland, CO USA - Tuesday, January 25, 2005 11:17 AM CST It's amazing what medical advances we have seen in the last 20 years. I'm so glad to see that Nolan is doing so much better than 2 years ago. I continue to pray for you as Edee made me feel like you are family. Nolan, keep up the good work! Kay Hodges Odessa, Texas - Monday, January 24, 2005 4:48 PM CST Hi!!!! Sorry I haven't signed your guest book in awhile. I hope you are doing ok and are enjoying the winter so far. I have a new website! It is MJ - The SMA Queen....If you want to check it out. If you don't see your website on my friends page (and would like to) e-mail me, and I will put you up ASAP. I hope you have a  ! and remember,  MJ MJ <TWEETYROLL88@aol.com> - Sunday, January 16, 2005 1:09 AM CST Just stoping by to say hello. I am glad to hear things are going well. I am also a paitent At Duke University medical center. www.caringbridge.org/nc/ashleyr Ashley Reber <alrhm@dnet.net> Cullowhee, NC USA - Saturday, January 8, 2005 1:38 PM CST Hello: Glad to hear things are going well. We are doing well also. Jack and I went to Duke for a check up in early December and all was well. He had a herniated belly button which we got repaired last week in St. Louis and that went well also. Today is Jack's third birthday. A birthday we didn't know if we would ever see. He is such a blessing to us. If things ever seem gloomy, his smile and laugh helps me to put things in perspective. We will continue to pray for Nolan and your entire family David Shuler - Jack's Dad <davidshuler@sbcglobal.net> Springfield, MO - Friday, January 7, 2005 3:11 PM CST Congrats on getting around to doing an update! Hee hee. Now...how about some new pictures!!!!!!!! Those of us out here checking up on you would appreciate some new photos! We love you and miss you like crazy!! Mike, Marian and Mikey www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Monday, January 3, 2005 9:13 PM CST Wishing you all lots of peace, happiness, and good health in the New Year. God Bless! Laura, Ken, Nathan, & ^^Angel Jillian^^ http://www2.caringbridge.org/fl/jillian/ Naples, FL - Sunday, January 2, 2005 2:45 PM CST We hope you will have a wonderful Christmas full of joy and happiness! Love to you all, Harmen, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Saturday, December 25, 2004 3:44 AM CST Wishing you a Merry Christmas and Happy New Year!!!! I hope the surgeries went well? Please know your in my thoughts and prayers even if I don't sign the book like I should!! Love and Hugs, Tami Slawson ( www.caringbridge.com/ca/slawson <tlslawson@aol.com> - Friday, December 24, 2004 8:38 AM CST Wishing you a very Merry Christmas. Margaret, Mike, and Grace Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com> - Wednesday, December 22, 2004 8:22 PM CST hey there. sorry that it has been so long since i last checked in with you all. i miss you all and am so happy to hear that things are going well! i hope that you all have a wonderful holiday season! jennifer <maddenj@med.unc.edu> chapel hill, nc - Tuesday, December 21, 2004 10:14 PM CST Hello Ramseys, hoping that this finds you doing well and wishing you a Happy Holidays. We'll be thinking of you. Its started to snow here by us tonight already! (And I did that too, entered a long update and on two totally separate occassions Ronnie came by and hit ONE button that wiped the whole thing out on me....)  Angel Chris {Gooch's mom} and all your friends at ~ Smile Quilts ~ - Sunday, December 19, 2004 9:17 PM CST  MJ <TWEETYROLL88@aol.com> - Sunday, December 19, 2004 7:07 PM CST Thanks for the update. I still check on Nolan. I have kept up with him for awhile now. I know no news is good news and I am so glad for that. I know you will cherish everything he does. I wanted to let you know I was thinking of you and your in my prayers. Carol Burgess <carol_burgess@kerrgroup.com> Conway, NC USA - Monday, December 13, 2004 5:08 PM CST Hi Nancy, I'll keep Nolan and you in my prayers for safe surgeries. That must have just melted your heart to hear him say "wove you"! Too cute! Lisa Post <LMPOST@cox.net> - Saturday, December 11, 2004 9:39 AM CST Hiya Nolan!! I miss you. It's been way too long since we've seen you!! We want to drive up to Denver for a visit. What do you say?? Let us know... Love, "Aunt T." Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Thursday, December 9, 2004 9:38 PM CST  MJ <TWEETYROLL88@aol.com> - Wednesday, December 8, 2004 0:02 AM CST  Happy Thanksgiving! Our thoughts and prayers are with you this Thanksgiving and always. Hugs, Angel Gloria <SimplicityMD@comcast.net> Owings Mills, MD USA - Sunday, November 21, 2004 5:53 AM CST  HAPPY THANKSGIVING TO YOU! What are you doing for Thanksgiving? My family is coming and we will have a lot of fun.  Wyatt is excited to see his "cousins", my aunt and uncle are bringing their 2 dogs, Maggie and Casey. Hope you have a wonderful Thanksgiving with your family. Big hugs from me! Love,   MJwww.caringbridge.org/ny/mjpurk MJ <TWEETYROLL88@aol.com> - Sunday, November 21, 2004 0:35 AM CST HAPPY THANKSGIVING TO YOU! What are you doing for Thanksgiving? My family is coming and we will have a lot of fun. Wyatt is excited to see his "cousins", my aunt and uncle are bringing their 2 dogs, Maggie and Casey. Hope you have a wonderful Thanksgiving with your family. Big hugs from me! Love, MJwww.caringbridge.org/ny/mjpurk MJ <TWEETYROLL88@aol.com> - Saturday, November 20, 2004 2:18 PM CST Hope this finds you all doing well. Good luck on your journey. We are keeping you in our thoughts & prayers.  Angel Chris {Gooch's mom} and all your friends at ~ Smile Quilts ~ - Friday, October 29, 2004 11:22 PM CDT HAPPY HALLOWEEN!!!!  Trisha Athy caringbridge.org/il/aaronathy <aaronsmom1027@sbcglobal.net> Belleville, IL - Monday, October 25, 2004 3:28 PM CDT Wow! I just spent the last day and a half reading through all of the journal entires! I did not know you then but I spent two life cahnging weeks with you in Brazil. Your famliy is amazing! Not only did you not seem to take your eyes off of Jesus but you focused on others as well. I don't remember a week that went by without you asking for prayers on others behalf. What a testimony you all have because of little Nolie and what God has done! All praise be to HIM! It is nice to know your family on other side of all of this and to see just where God has brought you. May you all continue to seek Him and give Him the glory! Heather <mrsbu@comcast.net> Denver, CO USA - Thursday, October 21, 2004 4:55 PM CDT I am glad to hear Nolan is doing so well and that you felt good enough to leave him for awhile. I hope you had a good trip but I know it is good to come home too. Check in on us. Love, Anne Anne Himes <arhimes@msn.com> Boonsboro, md usa - Wednesday, October 20, 2004 9:44 AM CDT I have followed your story for well over a year now. I am so excited and thrilled that Nolan is progressing so well. I read journal entries from other families that aren't as fortunate as you and my heart breaks for them. I look forward to hearing from you and how well Nolan is doing. It gives me great joy to hear that you are finally becoming a "normal" family again. I have three beautiful healthy children and I thank god everyday for them - one of which is Nolan's age. I pray that your family remains healthy and Nolan continues to do all the things normal 2 year olds do!!! Look forward to your next entry and new pictures!!!! Take care and God Bless all of you. Nicole Pruitt Sparta, NC USA - Monday, October 4, 2004 7:59 AM CDT Have a safe trip Nancy. Sam, good luck holding down the fort. We miss you guys so much and wish we weren't so far apart. I just love reading the updates about how well 'Baby Nolan' is doing...he's growing up just like we all prayed he would! (Now if we can just get a couple of more recent photos posted, we wouldn't have ANYTHING to complain about.) Love and hugs to all of you! Marian, Mike and Mikey www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Friday, October 1, 2004 2:01 PM CDT HEY NOLIE AND FAMILY. I AM JUST CHECKING IN AND LETTING YA'LL KNOW THAT AUNT LAURA AND I ARE THINKING ABOUT YOU EVERYDAY. LOVE YOU ALL UNCLE E ERIC KRUEGER <EKRUEGER@QUALITEC.COM> - Tuesday, September 21, 2004 10:24 AM CDT hey there. too bad c diff and gvhd are sticking around. i hope that nolan is able to overcome both. i miss you all and hope to see you the next time you all are in town. i hope school is going well for mackenzie and cooper. how cute that nolan roams around during church service. anyways, hope to hear from you soon! jennifer <maddenj@med.unc.edu> chapel hill, nc 27516 - Saturday, September 18, 2004 3:36 PM CDT Nancy, Thank you ever so much for reaching out to us while we are here at Duke. We are on Day 28 and hoping to make the move to the apartment in a few days. I finally had time to check out Nolan's site. What a CUTIE! His will and your courage are so inspiring. And, his pictures just make me smile. I wish it were not so late tonight - I would call you. I keep hoping to find a minute to do that, but minutes and days escape me. Of course, you know that. So now, I can pray for Nolan and for all of you, with faces in my mind. Oh - how wonderful to know that there is a happy ending in Denver. Love, Ann, Timothy, and Mark Ann Ayers <aha@georgetown.edu> Denver, CO USA - Saturday, September 18, 2004 1:09 AM CDT We are delighted to read that you can now be in church. I'm sure all heaven rejoices in the Lord's healing in your life. Stephanie & RachelJoy <mom2rj@comcast.net> - Saturday, September 11, 2004 1:11 PM CDT Hi Nolan!!!!!!!!! I can't tell you how WONDERFUL it was to see hold you and hug you and kiss you!!!! We have to schedule our clinic visits on the same day again so I can see more of you!!! You are such a cute, smiley, snuggly guy!! Next time maybe you won't be "hooked up" so we can play more... See you soon!! "Aunt T." Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Saturday, September 4, 2004 10:52 PM CDT Hiya, just saying a hello, I have a few jokes for you today, this time about bears Q: What do you get if you cross a skunk with a bear? A: Winnie the Pooh! Q: Why do bears have fur coats? A: Because they'd look stupid in anoraks! Lots of love and big…  Viks viks <viks@postpals.co.uk> - Wednesday, September 1, 2004 6:22 PM CDT Hello Island Princess here stopping by to see how you are doing. I will keep you in my prayers. God Bless you, Island Princess Butterfly Island  Island Princess <mooks@bellsouth.net> - Wednesday, August 25, 2004 12:07 AM CDT Hi to Nolan and his parents... I'm responding to the nice message that you took time to record today at "Timothy's" guestbook. I am Timothy's Great Uncle "I think" (his mom is my niece - I think I have it right). Anyway, your message was touching. I think it's nice that this site exists. It sort of sets up a support group... doesn't it? Thanks again for your kind words and I'm sure Annie and Mark appreciate it very much. I hope Nolan is doing as well as can be expected! He looks like a real trooper! Uncle, Dan Dan Haley <writehaley@comcast.net> Lakewood, CO USA - Thursday, August 19, 2004 9:23 PM CDT Just stopped by to visit your site. I'm so glad Nolan is doing those naughty things toddlers seem to want to do. If you say no, they seem to want to find out why they shouldn't. Sorry to hear that he has been feeling sick. I read some of your past journal entries and couldn't keep from crying especially the ones where he began walking. Nolan sounds like quite a little charmer. My granddaughter has Hurler syndrome also. We are at day +19. Remember us in your prayers and know that your little guy is in our thoughts and prayers. Cheryl @ www.caringbridge.org/ky/evline <evlinethomas@yahoo.com> Evarts, KY USA - Wednesday, August 18, 2004 7:29 PM CDT So glad you guys are doing well. You are always in our prayers and the girls and I check everyday for updates. May God continue to give you strength. Michal Willis <anela300@yahoo.com> Rochester , MI USA - Wednesday, August 11, 2004 12:19 AM CDT Hey Nolan....just checking in on you and your family to see how you are doing. I'm always checking on you and some of the other kids/families from Duke. I am very sorry you have been sick. I know you are very strong and will get though all of this. Cody is doing GREAT. He started 1st grade this year. He has missed almost 2 years of school since his transplant. I miss you and your mom alot. We were at Duke last month and I was hoping you might be there for your check up. I will continue to pray for you and your family. Love to all... Traci Sharp <SharpT24@wmconnect.com> Salisbury, NC USA - Thursday, August 5, 2004 8:25 PM CDT Hi Ramsey's! Just a quick note to say hello! You are still always in my prayers and thoughts! Love, Cathy <wwww.caringbridge.org/canada/isobel jacon@shaw.ca> - Tuesday, August 3, 2004 10:54 AM CDT just a little note to say hi and that we are still thinking of you guys every day. we are so happy to read about all of the wonderful progress nolan has made! god bless all of you. get ready nancy, nolan has alot of toddler time to make up, the paper towels are only the beginning!!! karl and lisa evans <karl.evans@globalriskconsultants.com> tulia, tx usa - Sunday, August 1, 2004 8:52 PM CDT What wonderful news! It's great to hear how well Nolan is doing. Keep up the good work, little buddy! And next time go for the toilet paper. It unrolls a lot faster! Debbie Moss <kdmoss1989@comcast.net> Rowlett, TX USA - Saturday, July 31, 2004 6:58 PM CDT What a WONDERFUL entry from your neighbor!! And HOORAY for the HOME RUN!!! Way to go Nolan!!! Hopefully we will run into you again at Children's. All our love, The Nicolls Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Saturday, July 31, 2004 9:40 AM CDT Just dropping by to let you know that I linked your site to mine at MPS Forum.com on the “Links” page. I hope this was okay and thank you for sharing your site with other MPS/ML parents! I enjoyed looking at your pages! Jessica (Mom to Kaity~Hurler Syndrome age 13) Jessica Wellman <jessicalw@earthlink.net> Crandall, IN USA - Friday, July 30, 2004 7:24 PM CDT hey there. just wanted to see how you all are. jennifer chapel hill, nc - Thursday, July 22, 2004 5:35 PM CDT Thanks for updating, Andrea! You sound like a wonderful neighbor and friend to the Ramseys! So glad to hear how well Nolan is doing! Lisa Post <LMPOST@cox.net> - Friday, July 16, 2004 7:30 AM CDT Andrea, Thanks for the lovely update! You just keep on growing up Nolan! You are so right! What more could we wish for? Go, Nolan, Go, Lots of love from, Madi Mitchems Evil Aunt Shelley <OneBadAunty@sbcglobal.net http://www.caringbridge.org/nc/princessmadison/> Riverside, CA USA - Saturday, July 10, 2004 1:11 AM CDT Why do bears have fur coats ? Because they'd look stupid in anoraks ! What do you call a big white bear with a hole in his middle ? A polo bear !  Love Post Pals viks <viks@postpals.co.uk> - Friday, July 9, 2004 7:16 PM CDT So glad Nolan is doing so well. Things are going good for Jack also. We will be back at Duke the week of July 20. God Bless. David Shuler <davidshuler@sbcglobal.net> - Wednesday, July 7, 2004 3:21 PM CDT Hi Nolan, My name is Jaime and i just found your caringbridge page. I hope you and your family had a nice holiday weekend. I hope you are feeling well. Have a good week. Jaime <Jaime13042@aol.com> NJ USA - Tuesday, July 6, 2004 7:08 PM CDT Hello to all of you! It's been quite a while since I wrote, but don't think I have forgotten any of you! I keep in touch with reading the journal entries and still keep you in my prayers! God is certainly showing His power and mercy in the life of Nolan! What a testimony of His loving grace! Love you all, Winona Winona Foley Garland, TX USA - Saturday, July 3, 2004 0:18 AM CDT I love the update!! I have checked in occasionally but it seems like forever since I signed the page so I wanted to say hello while I have a quick chance. God bless you each. Love, Tracy and Katia  Tracy and Katia <tmsol87@aol.com> - Thursday, July 1, 2004 8:53 PM CDT Thanks Andrea for the update. You said what I have been telling everyone who will len and ear that Nolan is doing well and is very much acting as a two year old. He is always in my prayers as I know he is yours. The Lord has used him to touch so many people. I am still making the Lemondaid with the recipe you gave me when I was last visting Nancy, I have had so many people ask for it also. lorene Davis (Nolan's nana) <nanaingarland@ont.com> Garland, Tx Usa - Thursday, July 1, 2004 8:46 PM CDT Thank you for the update, Andrea. I'm SO happy to hear that Nolan is doing so well. Sending continued prayers... Terry Snyder (Angel Jalen's "Am-Maw") http://www.caringbridge.org/fl/jalen <vix207@aol.com> Royal Palm Beach, FL - Thursday, July 1, 2004 1:47 PM CDT Hi Nancy... So happy to read your message. I'm so happy to read how well Nolan is doing. I hope and pray that he continues to get stronger. We weren't able to go back to Duke for the walk, but to be honest I don't think we'll ever go back. I know that sounds bad. Anyway we send our love and prayers. I always check your updates. Give Nolan a squeeze for me. Melissa, Stephen, Samantha, Stevie & Angel Manny Miramontes <angelmanny@netzero.com> Azusa, CA USA - Tuesday, June 29, 2004 3:16 PM CDT Hello Sam and Nancy, I haven't checked the site in quite some time so I was thrilled to see the wonderful news on Nolan's progress. I came across a picture of Dustin holding him last week and just smiled - the new pictures look so much like the "old Nolan"! Hope you had a nice, relaxing, enjoyable date for Sam's birthday (he's only 39!?!). We think about you guys often; let us know when you want to visit. Kim and Mark Anthony <kanthony1@san.rr.com> San Diego, CA USA - Monday, June 28, 2004 5:37 PM CDT I am delighted that life is just rolling along. May your summer be blest with laughter, and many happy memories. Stephanie & RachelJoy <mom2rj@comcast.net> - Saturday, June 26, 2004 11:39 PM CDT When the moon sets Over your shoulder As the sun rises Bright towards your face, What's in the middle? Your life is... Filled with choices For each moment, each place. We live between the Past and the future, In the moment of our Here, now, today. Can we cope with the Daily life stresses? If we humbly accept... We must pray. December 2001 © Matthew Joseph Thaddeus Stepanek Uncle Bubba <mdavis@moliris.com> Dallas, TX USA - Wednesday, June 23, 2004 1:58 PM CDT  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Monday, June 21, 2004 0:55 AM CDT so good to hear that things are going well!! miss you all! jennifer chapel hill, nc - Friday, June 18, 2004 12:05 AM CDT Glad to hear more good news! Sounds like you can even take 'Baby Nolan' on a real shopping spree soon, right Nancy? (I bet he's a lot of fun to try to keep up with in a mall.) Miss you guys a bunch! Happy Birthday Sam! Love and hugs! Marian, Mike and Mikey www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Sunday, June 13, 2004 1:57 AM CDT Yeah, Nolan, good for you! You can get out and enjoy the world a little bit!!! Happy birthday, Sam! Lisa Post <ltjpost@cox.net> - Friday, June 11, 2004 7:07 PM CDT Just checkin on ya! Love all the good news! Still praying in CA! Marian, Mike, and Mikey www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Wednesday, June 9, 2004 3:55 AM CDT Hello Ramsey Family~ Glad to hear all is well with Nolan - this is great news! I just wanted to tell MacKenzie what a wonderful job she did in the dance recital - as her teacher, she made me proud! (May I also applaud Sam and his dancing skills!!) WONDERFUL WORK! Kalina <kalina@reverenceacademyofdance.com> Louisville, CO - Sunday, June 6, 2004 11:02 PM CDT Dear Nolan and family, What a wonderful news! We are so happy for you! We think of you often and especially of Nolan. He is such a sweet little boy. Take care and love from all of us, Harmen, Jan and Jacomien <jacomienwichers@planet.nl> Haren, Groningen The Netherlands - Wednesday, June 2, 2004 3:22 PM CDT Yea Nolan!! I love hearing all that good news. I am sure mom and dad have years of toddler and post toddler scolding ahead of them. I know mine feels like it has been going on forever. How lucky we are! I am glad to know that I am not the only one being given a run for my money. Go, go, go. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Tuesday, June 1, 2004 4:39 PM CDT Hiya, a few jokes to try and make you smile this weekend. What are prehistoric monsters called when they sleep? A dinosnore! What do elves do after school? Gnomework Where do tadpoles change? In a croakroom!  Love Viks on behalf of everyone at Post Pals viks <viks@postpals.co.uk> - Sunday, May 30, 2004 10:25 AM CDT Hey Noley; I went downtown Calgary today and saw a bunch of Harleys. They are so cool but they are so big. I don't know how you would get down off them. Speaking of that: Do you know how to get down off a duck?? You don't get down off a duck silly, you get down off a goose. Pastor Dwayne <drbartley@shaw.ca> Calgary , AB Canada - Saturday, May 29, 2004 4:43 PM CDT Happy Sunday ~ God Bless you all, praying for you always! Miss Beverley <bevehope@shaw.ca> Calgary, Alberta Canada - Sunday, May 23, 2004 4:11 AM CDT Hello, I thought I would stop by to leave some jokes for you, I hope they make you smile. Love Viks and Everyone at Post Pals Q: How do you know that cats are sensitive creatures? A: They never cry over spilt milk! Q: What do you get if you cross a cat and a gorilla? A: An animal that puts you out a night!  viks <viks@postpals.co.uk> - Saturday, May 22, 2004 10:12 AM CDT Hey Sweetie, I was thinking about you today. I hope everything is going well. I'm so proud of Nolan! He is doing so well and I promise that you will be back in the land of the living again soon! I still ask, "Normal?? What's that??" LOLOLOL I love the pictures of the walk. It looks like everyone had a good time. Well, Please know you are in my prayers! Love and Hugs, Tami ( www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com> La Verne, CA - Friday, May 21, 2004 11:33 AM CDT Hi there, Just wanted to tell you your in our prayers. Lots of love, Sherry & Mikey caringbridge.org/fl/mikey <spotsmithm6@cs.com> - Wednesday, May 19, 2004 11:34 PM CDT I'm stopping by to see how Nolan is doing and to spend some time praying for your family. I can't believe how much Nolan has grown. He's getting so big. Truly the Lord has blessed with the remarkable progress he is making. I know that means a lot of love and work from the rest of the family, but truly Nolan is blossoming. Stephanie & RachelJoy <sstrom@quik.com> - Wednesday, May 19, 2004 10:17 PM CDT Hi! I found your site from another Caringbridge member. Did you know my birthday is April 18th too?! How cool is that! I would like to add you on my page. I'm praying for you. Your Friend, Angelica www.caringbridge.com/al/anjellyka Angelica <luvableangelica@hotmail.com> Madison, AL - Wednesday, May 19, 2004 3:57 PM CDT Dear Nolan, I bet you're glad to get mommy home. Take good care of her for me. I love you all! Miss Beverley <bevehope@shaw.ca> Calgary, Alberta Canada - Wednesday, May 19, 2004 4:48 AM CDT Nancy, so glad to read the good reports!!!! We are still praying for all of you. Rosie Rosie Barrera <lbarrera2@houston.rr.com> Katy, TX - Tuesday, May 18, 2004 10:16 PM CDT Dear Nolan, Thank you for letting your mommy come to Canada to visit me! I love you all very dearly! Be a good boy for daddy and give him a big kiss from me. Luv Miss Beverley <bevehope@shaw.c> Calgary, Alberta Canada - Tuesday, May 18, 2004 4:21 AM CDT WOW, Nolan looks so good, strong and healthy in the pictures. What a smile he has! Congratulations on the great reports. I'll keep you in my prayers. Mary <miniteasets@mail2world.com> Worth, IL USA - Friday, May 14, 2004 1:26 PM CDT Thinking about you this morning Nolie. I love you.... Love, Aunt Chelle Erie, CO USA - Friday, May 14, 2004 8:50 AM CDT i had a wonderful time seeing you all in durham. it really made my weekend (especially seeing nolan run around!) miss you all. i hope that nolan kicks the parainfluenza and c. difficile to the curb. i am already looking forward to seeing you all in october. please tell cooper and mackenzie i say hi!! jennifer <maddenj@med.unc.edu> chapel hill, nc - Wednesday, May 12, 2004 9:46 PM CDT Yeah! Alot of good news on Nolan's reports! So happy to read that! Keep up the great work Nolan! Lisa Post <ltjpost@cox.net> - Tuesday, May 11, 2004 9:51 PM CDT Happy Mother's Day! Laura, Ken, Nathan & ^^Angel Jillian^^ http://caringbridge.org/fl/jillian/ Naples, FL - Sunday, May 9, 2004 9:50 PM CDT Wow Nolan- it sounds like you are doing awesome! Keep it up little guy!! Happy Mother's day Nancy! Cathy Peters <jacon@shaw.ca www.caringbridge.org/canda/isobel> - Sunday, May 9, 2004 2:05 PM CDT Mothers Day Prayer I Pray for you that on this special Mothers day, God fills your heart in a truley beautiful way. And may, He in His reach from heaven above, Flow the wonderful family spirit, of His love. I pray He grant, truley sweet and Angelic care, That you may know, He is, always there. I pray within God's great vast Love for you In life, daily onward, In all that you may do, You feel His love, His strength, His peace, This Mothers Day blesses a spiritual release. Have a Blessed Mothers Day Chris Ullrich - Bella's Grammy <c_ullrich@msn.com, caringbridge.com/page/isabellaledesma> - Saturday, May 8, 2004 10:45 PM CDT Happy Mother's Day!!!!!!!!! Love and Hugs, Tami (www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Saturday, May 8, 2004 11:44 AM CDT We are so glad to read the good report. Jack is still plugging along and doing well. He is progressing daily. We are still being very cautious because a simple virus can mean a major setback. We are starting to wean off of the meds. Our goal is to get off of everything this summer. We will probably go back to Duke the week of July 20. We are praying that Jack will "wow" the doctors like Nolan did. Way to go Nolan. We are thrilled for you guys. David and Gina Shuler <davidshuler@sbcglobal.net> - Friday, May 7, 2004 10:33 AM CDT hi my name is kathy and my daughter is 2 1/2 we were told last september that she has hurlers and is taking the enzmye treatment now and is doing good with it feel free to visit her web site www.caringbridge.org/ky/katilynnsmom kathy and katilynn preston <katilynnsmom@yahoo.com> tomahawk, ky usa - Thursday, May 6, 2004 11:54 PM CDT Praises, Praises and more Praises....what awesome news!!!!!! Congratulations Nolan!!!! You are working hard and it is showing!!!!! I am so happy for you all that you received such encouraging news from his tests.........Nancy, how are you feeling from your surgery? Hugs and love to you all.... Elisabeth va - Thursday, May 6, 2004 5:10 PM CDT Praises, Praises and more Praises....what awesome news!!!!!! Congratulations Nolan!!!! You are working hard and it is showing!!!!! I am so happy for you all that you received such encouraging news from his tests.........Nancy, how are you feeling from your surgery? Hugs and love to you all.... Elisabeth va - Thursday, May 6, 2004 5:10 PM CDT What GREAT news! Maybe we will catch you all at Duke somethime. Way to go Nolan!! www.caringbridge.org/mo/jackshuler Gina Shuler springfield, mo usa - Thursday, May 6, 2004 2:33 PM CDT Nolan, Nancy, and Sam, It was so good to see you guys!! I hope Nolan keeps fighting off those bad bugs!! I can't believe how good Nolan looks!! Everyone loved the Beanie Babies!! That was really thoughtful of you guys. Nolan is amazing and he will be feeling better in no time. I hope you guys had a great time at the walk. I wish I could have been there! I will continue to pray for Nolan's recovery!! Love, Sameeya <sameeya@hotmail.com> Duke 5200, NC - Tuesday, May 4, 2004 2:13 PM CDT Best wishes for you week at Duke! I'm sure Nolie will make you proud! Lisa Post <ltjpost@cox.net> - Friday, April 30, 2004 10:03 PM CDT Have a wonderful time at the walk, Tell Queen Maddy to stop throwing up while you are there, and give the Mitchems a BIG HUG from the Evil Auntie.... As for you, Mr. Nolan Ramsey, Keep up the good work, I am so proud of you!!! Lots of love, Madi Mitchems Evil Aunt Shelley (http://www.caringbridge.org/nc/princessmadison) <BagLadies4U@earthlink.net> Riverside , CA USA - Wednesday, April 28, 2004 2:25 AM CDT Nolan, Hello there! You know me and you have a lot in common. My name is Dillion and I am two years old too! My birthday is one month before yours in March of 2002. I also have a metabolic disorder called 3-Methylglucatonic Acidria. (along with other things~ problably caused by the metabolic stuff, but doctors aren't sure) I love making new friends, and since you are my same age I thought you might like having a new friend too. I think that you are a very brave boy. I know that the battles aren't always easy but you got to keep the fighting spirit! please know that I am going to be saying tons of prayers for you, and for your family as well! and if you don't mind I would like to come back and check in on you, and try to give you a little uplifting when you need it. I would like to invite you to visit me anytime you want to at www.caringbridge.org/ok/boogieman and I look forward to us becoming friends Dillion Craig with some help from my mom Kimbra <okbabygirl20@yahoo.com> Muskogee, Ok - Monday, April 26, 2004 4:35 PM CDT Here's hoping the draino works and all the labs come back great. Have a great time at Duke. Jeanne and "Taylor" Blair <jbbbtbbb@cox.net or caringbridge.org/va/taylor_blair> Va Beach, Va USA - Sunday, April 25, 2004 6:18 AM CDT Hope you guys have a good trip. We will see you at the walk. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Saturday, April 24, 2004 2:21 PM CDT Just got back from 5 days in Vegas...business and pleasure...it was a nice little break from the norm. When I checked in this morning on 'Baby Nolan', I read that you guys are still struggling. We think of you and pray for you all the time! Hope Nolie had a great b-day! And, happy belated birthday to Cooper too. We miss you so much and really look forward to seeing you next week in NC! Love and hugs! Marian, Mike, and Mikey www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Tuesday, April 20, 2004 12:18 AM CDT Nolan~ HAPPY BIRTHDAY! (belated) I really hope you felt better for your big day, I am sorry you have had such a rough time lately :( I pray that you will feel better soon! Nancy~ I hope you have gotten some of that much NEEDED sleep! Thinking of you! Love, Jennifer Jennifer Restemayer <jennmarie@bis.midco.net www.caringbridge.org/nd/allison> Bismarck, ND USA - Monday, April 19, 2004 9:28 PM CDT Happy Birthday Nolan...Hope you have a great day and that your feeling better. I have been following Nolan's journey, don't know if I've ever signed his guestbook. My 3 yr. old son has MPS1 and is having ERT, would love to have you stop by and sign our guestbook. Keeping Nolan in my prayers. Love, Nikki & Cade Morrissey Nikki Morrissey <slimpikens1@yahoo.com www.caringbridge.org/il/cademateo> Kewanee, Il USA - Sunday, April 18, 2004 9:17 PM CDT We are sorry to hear that Nolan is having such a rough time. We pray that the paraflu and c-diff are gone soon. We are so proud that Nolan is walking. Yeah Nolan. Keep fighting! We will see you when you get here next week! Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Sunday, April 18, 2004 3:13 PM CDT Sorry to hear Nolan was not feeling well, hopefully he will feel better soon. Keeping you in my thoughts and prayers... With HOPE, Michelle * <moocow517@comcast.net> Mullica Hill, NJ USA - Sunday, April 18, 2004 0:25 AM CDT Hey Nancy, I was going to wait until tomorrow to post this but I was afraid I would not get to the computer and miss it!! HAPPY BIRTHDAY NOLAN!!!!!! I hope you have a very happy birthday baby and I hope you are feeling better! Love and Hugs, Tami ( www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com> La Verne , Ca - Saturday, April 17, 2004 7:37 PM CDT wow, nolan's walking! i can't wait to see him in action when you all return to duke! i hope cooper had a great birthday and that nolan is feeling better for his birthday tomorrow. see you all soon! jennifer chapel hill, nc - Saturday, April 17, 2004 12:57 AM CDT Praying Nolan gets out soon and all goes well with the port placement next week. Sending hugs and prayers. Martha White <MWhite6@charter.net> Princeton, WV - Friday, April 16, 2004 7:36 PM CDT Hope you got to go home today Nolan- stay out the hospital from now on, okay?! Love, Cathy Peters <www.caringbridge.org/canada/isobel jacon@shaw.ca> - Friday, April 16, 2004 6:32 PM CDT Ooooops! Very Happy 8th Birthday Cooper!!! I hope your birthday was as special as you are!! Hugs, Tami <TLSlawson@aol.com> - Friday, April 16, 2004 9:28 AM CDT Hey Nancy, I'm so sorry Nolan is in the hospital again! (very sad face) I will keep you in my prayers for a quick release the hotel:).... It's sad but I now like hospital food..LOL Love and Hugs, Tami ( www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com> La Verne, CA - Friday, April 16, 2004 9:25 AM CDT Nolan, Good job walking!!! Feel better soon! You and your family remain in our prayers. Katie Boulder, CO - Thursday, April 15, 2004 11:37 PM CDT YEAH NOLAN!!!!!!!!! I'm so happy to hear good news baby! Walking and normal enzyme what a great week! Keep up the good work and take good care of your Mommy! Nancy I'm doing a happy dance for you all!!! Love and Hugs, Tami ( www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Tuesday, April 13, 2004 11:31 PM CDT Yeah NOLAN!!! I'm so glad you got brave and took the first step. I knew you could do it. We really miss all of you and I wish I could have stayed much longer. I really enjoyed the visit. I know the kids really enjoyed it. We'll be praying for you and your trip. I know you'll only hear good news!!! Lesha Katy, TX - Tuesday, April 13, 2004 3:44 PM CDT Yeah Nolan!!! I knew you could do it!!! I am glad you are all home together again. I know you will wow them at Duke. Keep up the great work! Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Tuesday, April 13, 2004 12:07 AM CDT Congratulations Nolan!!! You're such a big boy. Keep up the good work. And Nancy, you and Sam keep up the good work too. God is doing such amazing things through you. I continue to keep you all in my prayers. Have a safe trip to Duke. Kim Barron <kbarron@ibsa.com> Rowlett, TX USA - Tuesday, April 13, 2004 8:03 AM CDT Nolan, Cooper, and Mackenzie, I hope you had a very "hoppy" Easter! Love, E. Bunny E. Bunny <E.Bunny@happyeaster.com> Bunnyland, USA - Monday, April 12, 2004 0:46 AM CDT Happy Easter Love Everyone at Post Pals  viks <viks@postpals.co.uk> - Saturday, April 10, 2004 1:12 PM CDT Thinking of you all...hope the GvH clears up quickly. Thank you for the advice at the beginning of our journey. I will always remember the day in clinic when I met you all, you gave so much hope. Thank you. With Love and lots of HOPE, Michelle (Ashleigh's mommy) caringbridge.org/nj/ashleigh.ryann * <moocow517@comcast.net> Mullica Hill, NJ USA - Wednesday, April 7, 2004 4:49 PM CDT you all are in my thoughts. i hope things are going well! jennifer chapel hill, nc - Wednesday, April 7, 2004 4:16 PM CDT Yikes! How do you juggle it all??!! I'm so glad you have friends and family to help you. I will continue to pray for all of you. May your Easter be Blessed. Stephanie and RachelJoy <sstrom@quik.com> - Monday, April 5, 2004 7:43 PM CDT Yikes! How do you juggle it all??!! I'm so glad you have friends and family to help you. I will continue to pray for all of you. May your Easter be Blessed. Stephanie and RachelJoy <sstrom@quik.com> - Monday, April 5, 2004 7:41 PM CDT .gif?dc=4675458679663459861) Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Saturday, April 3, 2004 11:00 PM CST Hi Nolan! God Blass You. I know your father here in Brazil. He blassed me and I so speak for him, thanks. We are love all your family. Abimael, Edilma and Ely, pray for You. Maranata!!! Oi Nolan, Deus abençõe você. Eu conheci seu pai aqui no Brasil. Ele me abençoou, e só tenho que lhe dizer, obrigado! Nós amamos toda sua família. Abimael, Edilma e Ely, estão orando por você. Ora vem Senhor Jesus!!! Abimael Pereira da Silva <maranatagospel@hotmail.com> Campina Grande, PB Brazil - Tuesday, March 30, 2004 6:50 PM CST I am glad that the surgery went well. I will keep Nolan's GVH in my prayers. I will be really glad when our boys are off their steroids. I can't wait for a little growth around here! Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Tuesday, March 30, 2004 11:33 AM CST Hi Ramsey's! Nolan-I hope that everything is going well and that you are either out of the hospital or getting out in the next few days! My prayers are with you all! Love, Cathy Peters <jacon@shaw.ca ww.caringbridge.org/canada/isobel> - Sunday, March 28, 2004 5:18 PM CST Hope you guys are hanging in there! We're sure praying for a quick recovery for Nancy and for Nolan to keep doing better and better!!!! We love and miss you guys SO MUCH!!! Mikey asks about Cooper and wonders why we can't get together so they can play. He doesn't quite grasp the distance between CA and CO. Sure looking forward to seeing you in April/May. Love and hugs! Marian www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Friday, March 26, 2004 1:08 PM CST Hi Nolan!! Congratulations on your discharge from the hospital!! Guess who's in YOUR EXACT BED - Yep, Cameron!! Can you believe it?? Hopefully we will only stay a short time as well. We hope you are feeling better little man!! Love, The Nicolls Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Thursday, March 25, 2004 12:48 AM CST Just a big kiss to all of you ... Joelle, Randy and Bernard <trramsey@swbell.net> Waco, TX USA - Thursday, March 25, 2004 8:29 AM CST I am thinking about you this morning Nancy. I hope everything is on schedule and that Nolan is doing better. Take care of yourself and get better soon. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Thursday, March 25, 2004 6:10 AM CST We are praying for Nolan's quick recovery! Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Wednesday, March 24, 2004 2:22 PM CST At this rate, maybe you and Nolan could share a hospital room. If your finances are anything like the rest of us BMT families, that might not be a bad idea. Maybe they could give you a family rate. All kidding aside, Nolan baby you got to stop this stuff. I want you to feel all better! Love to you all. Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Tuesday, March 23, 2004 11:18 AM CST Dear Nance, I'm thinking about you and Nolan tonight. SHEW! What a week it's been! The days seem to fly by - I haven't stopped by Nolan's site this past week so I wanted to check-in. Thanks for your prayers for little Chase :-) As you know, they worked because he's on the road to recovery and back to sleeping through the night the last couple of days! Tonight will be a long night for you, I'm sure. Hang in there sister! Have I told you lately that you're doing a GREAT job? Well... you're doing a GREAT job! And just a reminder -- you will never, never be a burden to me. I will never feel 'abused' by you or Sam. You are my family. You are my sister. We share our homes, our children and our lives...smile. We won't have to talk about this again...will we?...!!!! ;-) I'll talk with you in the morning. Sending lots of love and prayers up the street to you! Love, Chelle <michelle_strayer@hotmail.com> Erie, CO USA - Sunday, March 21, 2004 11:58 PM CST good to read that mackenzie and nolan are doing better. i hope cooper doesn't get very sick. i hope your surgery goes well and that you are able to recover quickly! jennifer chapel hill, nc - Sunday, March 21, 2004 10:14 AM CST You poor thing. You have had awful luck. I know that Dr. K warned me that if we ever had to put Andrew on antib. for anything that we would have to go back on andrew Flagyl (for his C-diff)for awhile because they would cause his C-diff to return. Maybe that is what happen to you guys. I hope everyone feels better soon. I am keeping you and Sam in my prayers. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Friday, March 19, 2004 12:53 AM CST You poor thing. You have had awful luck. I know that Dr. K warned me that if we ever had to put Andrew on antib. for anything that we would have to go back on andrew Flagyl (for his C-diff)for awhile because they would cause his C-diff to return. Maybe that is what happen to you guys. I hope everyone feels better soon. I am keeping you and Sam in my prayers. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Friday, March 19, 2004 12:52 AM CST you all are still in my thoughts and prayers. nolan is a strong little guy and will fight off infection. good luck with the upcoming week. jennifer chapel hill, nc - Friday, March 19, 2004 9:39 AM CST Sending you prayers and love! Cathy Peters <jacon@shaw.ca www.caringbridge.org/canada/isobel> - Thursday, March 18, 2004 5:42 PM CST Nolan is always in our prayers. He is a little fighter. Love, Marianna (Angels' Hermes and Aristofanis Mom). Marianna <ermiskub@yahoo.gr> Lamia, Greece - Wednesday, March 17, 2004 1:37 PM CST I hope this finds you doing well, and good luck with the gallbladder surgery. I am not Irish but you know what they say about St Patrick's Day....  Angel Chris ~ Smile Quilts ~ chrisrusso_@hotmail.com - Monday, March 15, 2004 8:24 AM CST Hello, Some jokes for you today, What's a teddy bears favourite pasta ? Tagliateddy ! Why shouldn't you take a bear to the zoo ? Because they'd rather go to the cinema ! What is a bear's favourite drink ? Koka-Koala ! Love Viks  viks <viks@postpals.co.uk> - Monday, March 15, 2004 6:48 AM CST Hi! I just wanted to wish you a happy St. Patty's day! Hope you're doing well!   ,MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/ MJ <TWEETYROLL88@aol.com> - Friday, March 12, 2004 7:52 AM CST i will definitely keep you all in my thoughts, especially you nancy as you undergo surgery. i am sure that things will work out for the best with ana carla and you all. god must have a plan. i miss you all! jennifer chapel hill, nc - Thursday, March 11, 2004 9:30 PM CST I will be keeping you guys in my prayers. I pulled off heart surgery last Jan so it can be done. I will pray that lots of good loving people around you will step up to the plate and provide what you need. It has a strange way of working out when it has to-with God's help. Hang in there. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Wednesday, March 10, 2004 11:33 AM CST Hello my name is Jenna and I came across Nolans page. Nolan has a great smile, and he is a real inspiration in life. He will be in my prayers. http://www.caringbridge.org/canad/jenna Jenna <hockeykid@telus.net> Kamloops, BC Canada - Tuesday, March 9, 2004 9:52 AM CST What a journey you have been on for the past year! I continue to pray for your family but just haven't sent a message in a while. Rest will come in time and you'll look back and wonder how it was possible to do so much on so little sleep. God is good. Kay Hodges Midland, TX - Monday, March 8, 2004 11:49 AM CST Fluttering by wishing You all the best:) You´re in my prayers from now on.. Hugs, Angel Susanne Simply Enchanting Angels http://seangels.org  Angel Susanne <lehte56@hotmail.com> Simrishamn, Skane Sweden - Saturday, March 6, 2004 10:59 PM CST Sleep . . . What is that? It seems transplant parents can survive on a lot less of it than we thought. We are glad to hear you guys are back home and are praying that Nolan is on the road to full recovery. I know all the setbacks are difficult, but hang in there. We love and miss you guys. Take Care! Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Saturday, March 6, 2004 6:19 PM CST There's no place like home...Sending lots of love and continued prayers your way...(((hugs)))  Positive Angel <positivestories@aol.com> - Saturday, March 6, 2004 9:04 AM CST Dear Nancy, I am so glad that Nolan is home. I am guilty of not having checked in for awhile and I had no idea that you were having to go through all of this. I am so sorry. I hope things are on the up-swing now!!! I will be praying for you and checking in more often. I wish I was there to help. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Friday, March 5, 2004 8:44 PM CST Yeah Nolan! You are HOME!!! Lisa Post <ltjpost@cox.net> - Friday, March 5, 2004 3:33 PM CST Nolan Sweetie, So glad you are home and praying you are better soon. I wish you many sunny days and only healthy days. I am sending you a rainbow to enjoy. praying for your quick recovery. You write me anytime Nolan's family. I am always here. Love Ya Muahhhhhhh Hugs And Kisses Angel Luvyapoet Simply Enchanting Angels SEA URL: http://seangels.org SENDING A RAINBOW God is sending you a rainbow. He knows when you are so sad, feeling blue. Don't worry he will always know! His bright colors will cheer you. When each moment is trying to get you down, God is sending a rainbow to warm the day. His cheerful colors turns away any hint of a frown. His love is there to stay. God is sending a rainbow with colors bright. His sun sends warming beams to heal. He feel you are sick, not feeling right. For he loves you dearly, every heart fill. God is sending you a rainbow. He knows when you are so sad, feeling blue. Don't worry he will always know! His bright colors will cheer you. Dorothy E. Scott © Copyrighted 2001 Mementos For Laura Angel Luvyapoet ; http://www.geocities.com/dorothy_poet <poetry99@txol.net> Ranger, Tx. USA - Friday, March 5, 2004 12:02 AM CST Hey Nancy, Yeah!! I'm so glad Nolan is home but fever and rash? YUCK! I'm going to pray things get easier soon. I wish the doctors didn't have to pull his central line. IV's are not easy for our MPS babies. I hope he has good veins! I'm praying, I'm praying, I'm praying!!!! Love and Hugs, Tami Slawson (www.caringbridge.com/ca/slawson) <TLSlawson@aol.com> La Verne, CA - Friday, March 5, 2004 10:01 AM CST i am so happy to hear that you all are back home! i hope that nolan has a speedy recovery! jennifer chapel hill, nc - Wednesday, March 3, 2004 8:30 PM CST Nolan, may you find rest and peace and total health through Jesus Christ, the only true healer, who carries you in the palm of His hand. Blessings of total healing to you in that wonderful name, the name above all names, even the name of pneumonia, the Name of JESUS. Amen. Carolyn Wyman <sythismom@yahoo.com> Belding, MI Trimper Country - Tuesday, March 2, 2004 2:18 PM CST I hope you get to go home today Nolan. We are thinking of you and your family. Laura, Ken, Nathan, & ^^Angel Jillian^^ Naples, FL - Tuesday, March 2, 2004 9:16 AM CST I hope you feeling better soon.  Angel Taney - Simply Enchanting Angels - http://seangels.org <taneysmail@yahoo.com> Ohio - Tuesday, March 2, 2004 7:46 AM CST Hello Nolan, I just wanted to come by and say hello. I'm sorry you are in the hospital and not at home. And remember there are always angels somewhere praying for you. Angel Faith Simply Enchanting Angels Angel Faith <kdickson39@aol.com> Wilmer, Al USA - Monday, March 1, 2004 11:26 PM CST Nancy, it was wonderful to go to the front door & see you standing there. Leonard & I really enjoyed the evening; tell Sam & the kids we missed them. We love you & always keep you in our prayers. Love, Rosie Rosie Barrera <Lbarrera2@houston.rr.com> Katy, TX USA - Monday, March 1, 2004 8:33 PM CST Hello Nolan and Nancy I just caught your update. I'm so sorry you didn't get to go home today maybe tomorrow will be the day. I tried to call but did not get anyone so I called Michelle and she brough me up to date. on things. I also told her if you need me I can arrange things where I can come anytime. You know I love your little family and will help you when and where you need me. Give Nolan a big hug and kiss from his Nana. Also the other two when you see them. Love you all Nana lorene Davis (Nolan's nana) <nanaingarland@ont.com> Garland, Tx USA - Monday, March 1, 2004 7:30 PM CST Praying Nolan is better and going home soon!!!! Lisa Post <ltjpost@cox.net> - Monday, March 1, 2004 2:31 PM CST I am praying for all of you and for the healing of your son. We don't always know what God has planned but we must live each day and let God control. All things are possible through Jesus Christ our Lord. My God Bless You All. Terri Martines <MARTINES@FR.COM> Seagoville, Tx USA - Monday, March 1, 2004 2:06 PM CST Hi little Nolie-Biscoli :-) It's your Aunt Chelle. I'm thinking about you this morning and sending lots of kisses your way! Now I'm just "up the road" from you so my kisses don't have to travel all the way from Texas -- they should still be good and warm!...smile. I'm sending lots of prayers that you get to go home today, but only if you're little body is ready. Kenzie and Cooper miss you SO much. They don't like to talk often about you being in the hospital, but I can see the concern on their faces. Oh how they love their Nolie! I visit your site but don't leave entries anymore. I've been blessed with seeing you almost every day -- so whatever I've got to say I get to tell you face to face! :-) But today I felt like jotting you a note - so here I am! Although I miss our family and friends in Texas, not a day passes that I don't whisper a thank-you to Heaven for rearranging our lives and helping our relocation happen! Many of us like to believe that we ultimately control our destiny -- I for one have come to believe that it's a God thing! He places us exactly where we need to be, when we need to be there. Here we are! :-) Well, I've got to go. Just dropping in to say hi and let you know I'm always thinking about you. Sam & Nancy, I love you. Every day I'm thankful for you. We are truly blessed! Love, Aunt Chelle <shawns3418@aol.com> Erie, CO USA - Monday, March 1, 2004 11:21 AM CST Hey Nancy, I'm so sorry Nolan is back in the hospital. YUCK! I hope he feels better soon and gets to go HOME!! Please know you are in my prayers. Love and Hugs, Tami Slawson (www.caringbridge.com/ca/slawson) <TLSlawson@aol.com> La Verne, CA - Monday, March 1, 2004 9:19 AM CST  hope all is well..you all will be in my prayers and thoughts,may god reach down and heal yur little body god bless always... Simply Enchanting Angels http://seangels.org AngelWhisperingWind <softflower@earthlink.net> - Monday, March 1, 2004 9:18 AM CST Hi Nolan sweetie! I love being able to see such a sweet smile in your pictures of yourself and that great family of yours! Boy, you are such a lucky family to have so many smiles to make visitors feel happy when they come to see you! I hope that soon you are feeling better as Spring is coming up soon and right now I am listening to a soft, warm rain falling against the window panes. It's so much fun to feel the rain on your cheeks and smell it after the rain stops! I'll try to send some of this special weather your way so it will help you sleep well through the nights and you can wake up to a beautiful, sunny morning the next day! Keep those happy thoughts coming for yourself and your family and I'll send some more angels to be with all of you!  Angel of the Forest, Simply Enchanting Angels - Monday, March 1, 2004 0:24 AM CST Dear Nolan and Family, I wish you all the best and hope and pray for Nolan to get better. What a little Sweetheart! God bless you all! Angel Lotus (SEA) <lotusflower58@hotmail.com> Edmonton, AB Canada - Sunday, February 29, 2004 7:13 PM CST Dear Nolan & Family, I am so sorry to hear about Nolan, my heart goes out to u all and u all are in my prayers. Please keep me updated with Nolan's illness as i am interested in know how he is doing! Luv & Hugs, Angel Cheyenne Angel Cheyenne (from SEA) <LakotaWarrior668@yahoo.com.au> Sydney, NSW Australia - Sunday, February 29, 2004 2:37 PM CST Hi there Nolan! I am keeping you in my prayers. Keep on fighting kiddo! God Bless, Roobear Angel from Simply Enchanting Angels  Roobear Angel <Roobear@foreverangels.com> - Sunday, February 29, 2004 1:36 PM CST  Good morning Nolan and family, Sorry to hear that you are back in the hospital, but hopefully this will be a short visit. I will pray for your strength and health. Remember that there are angels all around you. Angel Wings from Simply Enchanting Angels My site: Angel Dreamz Angel Wings <angelwings@angeldreamz.net> Palm Springs, CA USA - Sunday, February 29, 2004 10:38 AM CST Hi! Happy Leap year!! Its hard to believe its almost March. I've still been home sick, no school for me. :( I have been doing homework but not much (shame on me). Wyatt sends you big slobbery dog kisses from NY. Hope you're doing well! Love, MJ http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk/ MJ "Just living isn't enough," said the butterfly, "One must have freedom, sunshine and a little flower." -Hans Christian Anderson MJ <TWEETYROLL88@aol.com> - Sunday, February 29, 2004 9:49 AM CST you all are in my thoughts and prayers. nolan is a wonderful little fighter. i think that the improvement he has shown is a good step and hopefully indicates a bacterial infection. miss you all! jennifer chapel hill, nc - Sunday, February 29, 2004 9:29 AM CST Hope Nolan gets better soon. Tina (Sophie's Mum) Tina <tina@melroseroad.co.uk> London, UK - Sunday, February 29, 2004 6:36 AM CST Sorry to read your latest entry........prayers for Nolan will continue.....I check on you guys constantly---I have had so much trouble getting into your guestbook---for sometime I kind of just gave up--glad it worked today! You guys and especially that darling baby are always in my thoughts....I hope this clears up quickly! God Bless. Elisabeth va - Saturday, February 28, 2004 3:32 PM CST I just ran across your website and it is wonderful. My daughter Amrah is 17 months and had a BMT in Ocotober she is doing very well but I know how difficult it can be. Nolan is a sweetheart and I will be praying for him and your family. God Bless. Stacey Peterson Stacey Peterson <sleighpeterson@hotmail.com> Estevan, Saskatchewan, Canada - Saturday, February 28, 2004 1:27 PM CST Just checking in ... Margaret Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com> - Friday, February 27, 2004 9:56 PM CST I found your journal entry on my cousin Queen Maddy's caringbridge page. Nolan is absolutely adorable, I will pray for his recovery. Alison Chapman <Mizscrlet76@aol.com> Colton, CA - Friday, February 27, 2004 8:59 AM CST So glad to hear you got to go 'home' for a few days! You needed a little break from 'reality!' Good to hear Baby Nolan is still doing well. We'll keep praying that the virus goes away very soon. Can't wait to see you in May back at Duke...we're really looking forward to seeing all of our friends from back there. It's amazing to me how close we feel to some of the friends we made during those short 5 months. What a bond, huh? Looking forward to some hugs! Love, Marian www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Friday, February 27, 2004 1:11 AM CST Just checking in on you and wondering how everyone is doing. Miss you all! Marian www.caringbridge.org/nc/princessmadison <mitchem@wwdb.org> Riverside, CA - Tuesday, February 24, 2004 5:16 AM CST hey there. i hope things are going well. looking forward to see you in april!! jennifer chapel hill, nc - Monday, February 23, 2004 9:26 PM CST Hey everyone! I am sorry that little Nolie is under the weather. Dont worry he is a tough guy, he will be feeling better in no time. I miss you all so much. I know I don't sign this as often as I should. I just wanted to let you guys know that I am still thinking of you often, and I really miss Nolan. I hope he feels better soon. I love the pictures!! Love, Sameeya <sameeya@hotmail.com> PBMTU, NC - Sunday, February 22, 2004 10:32 PM CST Hoping Nolan is feeling better now...You all are in our thoughts and prayers In Love & Prayer...Eleasha & Cody <ehilliard@verizon.net> www.forcody.org, - Friday, February 20, 2004 5:34 PM CST I hope Nolan is feeling better and you were still able to make your trip. We are thinking of you guys all the time. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Thursday, February 19, 2004 3:01 PM CST It's great to hear you kicked the bug, Nolan. It's good to know you're feeling better! Nancy, I'm glad you're able to go to Houston. I'm sure you're ready for some down time. Enjoy your trip and know that the Lord will keep his umbrella over your family to protect them from the "rain" while you're away. Debbie Moss <kdmoss1989@comcast.net> Rowlett, TX USA - Monday, February 16, 2004 10:44 AM CST  Happy Valentines Day, From Everyone at Post Pals viks <viks@postpals.co.uk> - Saturday, February 14, 2004 0:45 AM CST Oh Nolan, I sure do hope you are feeling better by now. Get well little guy!! Love, Lisa Post <ltjpost@cox.net> - Thursday, February 12, 2004 4:34 PM CST I hope Nolan gets over his virus soon. Love Tina (Sophie's Mum) Tina <tina@melroseroad.co.uk> London, UK - Thursday, February 12, 2004 2:53 PM CST Dear Nancy and Sam I just wanted to say that i am checking your site very often and i am praying for Nolan. May the virus go away from him as soon as possible. Love, Marianna (Angels'Hermes and Aristofanis Mother). Marianna Koumpouras <ermiskub@yahoo.gr> Lamia, Greece - Tuesday, February 10, 2004 3:13 PM CST I love you and I'm praying for you Luv Miss Beverley <bevehope@shaw.ca> Calgary, Alberta Canada - Tuesday, February 10, 2004 4:55 AM CST I'm so sorry to hear about Nolan's virus. I hope it runs its course soon so he feels better. We are thinking about you always. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> Decatur, IL - Monday, February 9, 2004 9:19 PM CST Sorry to hear about Nolie's tummy bug. It's been a while since I've posted but I'm still checking your updates and continue to keep all of you in my prayers. God Bless. Kim Barron <kbarron@ibsa.com> Rowlett, TX USA - Monday, February 9, 2004 8:27 AM CST So sorry to read about Nolan's virus. Hope his appt. Monday brings good news and he gets over it soon! Just wanted to wish you all a happy Valentines holiday surrounded by the love of your family and friends. Hope you get some much needed rest soon too!  Angel Katnapper / Smile Quilts <katnap22@hotmail.com> Bloomington, IL United States - Monday, February 9, 2004 0:59 AM CST Poor Nolan. I was hoping for better news, but it will come. Hang in there and know that you are still supported in prayer every day. Carolyn Wyman <sythismom@yahoo.com> Belding, MI Trimper Country - Sunday, February 8, 2004 7:00 PM CST Dear Nancy, I have been praying for you and your family for about a year now, and frequently check in to see Nolan's progress. I thought it was time to just let you know how God puts you and your family on people's hearts to pray for you! Because that's what He does with me, He puts you on my heart to pray, and pray, and rejoice with you during times of praise and thanksgiving. You may remember me from ballet, my daughter Aimee was in Kenzie's class last year. I just want you to know that I love you...God grows deep love in your heart as you pray for someone... And since I hadn't told you that before (I'm guestbook shy, I guess!), it's time I did! Perhaps it will encourage you to know how God is working in the hearts of others, as He directs us to pray for you. God Bless You and your precious family! Carol Crowley <mukluk@frii.com> Longmont, CO - Sunday, February 8, 2004 12:56 AM CST Hello, Just popping in to say hello and see how you were all doing. I hope Nolan gets better soon and you can get some rest. Take care and I will check in again soon.  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Sunday, February 8, 2004 11:53 AM CST You have a beautiful child and is in our prayers. I to have a hurlers child. She was born 19 Apr 95, diagnosed Nov 95 and had an unrelated BMT June 96. She is doing very well, in the 3rd grade and loves school. She will be 9 in Apr. She had her BMT by Dr William Krivit at Fairview University Minneapolis Mn formerly known as Minneapolis University. Her name is Caitlyn Marie Woolfolk. Mary Stoner <sgt_snookums@yahoo.com> Ft Belvoir, VA US - Saturday, February 7, 2004 2:48 AM CST Dear Nolan, I'm at work tonite and just showed your picture off to the other nurses, "What a cutie"!!!! Give mommy a big hug from me. Luv Miss Beverley <bevehope@shaw.ca> Calgary, Alberta Canada - Monday, February 2, 2004 3:10 AM CST wow, i am glad to hear that nolan is home again. i have been busy studying away and had not checked the site since probably the beginning of january. hurray for vancomycin! (i actually studied that last week.) i actually even learned about why his line is being replaced, at least i have a good guess. well, i hope that you are able to get adjusted to the new routine. please tell cooper and mackenzie and nolan i say "hi!" i will keep you all i my thoughts. jennifer chapel hill, nc - Sunday, February 1, 2004 10:48 PM CST I'm sorry that I lost the address to your CB page around the time that Nolan got sick. My computer was crashing, so I quick saved what I could and must have missed this one. Anyway, I'll be praying for a quick recovery and am so grateful that this will end well, as everything is in the Lord's kind hands. So thrilled to hear of Nolan's great test results - God is good all the time! Carolyn Wyman <sythismom@yahoo.com> Belding, MI Trimper Country - Sunday, February 1, 2004 6:58 PM CST I am still checking on you guys and still praying for Nolan and for you. I'm glad you are home and Nolan is doing better. I am most touched by your attitude and faith through this all. Hang in there! God is Good. Shelly English <shelly.english@earthlink.net> Katy , Tx - Tuesday, January 27, 2004 7:04 PM CST Glad to read that Nolan is home. Sometimes it's hard to be the parents...but I find that even when things get very hard, somehow the good Lord gives me the strength I need to get done what needs to be done. God Bless! Lisa Post <ltjpost@cox.net> - Tuesday, January 27, 2004 3:13 PM CST Oh Nancy, I just wanted to cry reading you update! I forgot about the NY trip. I'm so sorry! I wish I could just hug you!!!! Don't you love a good cry? I do! Everything is better after a good cry! Life makes sense again... LOL Please remember your always in my prayers! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Monday, January 26, 2004 10:23 PM CST We are so glad to hear that Nolan is home and feeling better. We have been battling the same thing with Jordan this week. He is now home and waiting to have his lines removed later this week. I too have had my share of breakdowns this past week. Please know that we are always here for you. We love and miss you guys. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Monday, January 26, 2004 6:29 PM CST What good news about Nolan's eyes and ears. I'm praising the Lord for the encouraging update. I will be praying that the Picc line will be more than adequate until he can have another central line. May the Lord be your strength, wisdom and peace as you continue to provide Nolan with all the love he needs to remain strong. Stephanie and RachelJoy <sstrom@quik.com> - Saturday, January 24, 2004 9:26 PM CST Happy to hear all the good results. I will keep praying for you Angel Bella's cousin - Saturday, January 24, 2004 5:30 PM CST Hey Sweetie, I hope Nolan is home and feeling better. If he is "poked" more than once a week, then stay with the central line!! It will make life easier for him and you. I will keep you all in my prayers. I'm glad the tests are showing improvements! Way to go Nolan!!!! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Saturday, January 24, 2004 10:22 AM CST Hello, Hello!!! I know I spoke with you today, but you were steady on my heart today (just like all days really). I feel like a stranger to the site-I don't check it like I should-I just call instead. Anyway, back to my purpose-I just want you to know how much I enjoyed talking with you today-waking you up and all-that time difference will get me everytime!!! I am so truly blessed to be able to call you my best friend-you have and still continue to bless my life. Thank you for teaching me again, and again. Don't think for a minute that you are not strong-you Nancy are not but God through you-you are-Settle back and be a receiver of others for a while-let people continue to take care of you!! My heart aches that I can't do more-but you and Nolan are continually in my prayers and thoughts and we can't go a minute without praying for Sammy, Boo, and Coop. I love you sister of mine (if not in blood, in spirit). I miss you terribly, but I can't think of any other place you should be. Keep holdin' on-I praise the Lord for His provision this far with Nolan and my hope rests in Jesus to take him all the way!!! I'll talk with next week. All my love!!! Holly Strickland <hoddyg@ev1.net> Katy, Tx - Friday, January 23, 2004 8:13 PM CST Hope Nolan goes home soon and the infections are cleared. Great news about his hearing and eyesight!! I love reading things like that! YEAH!! Love, Lisa Post <ltjpost@cox.net> - Friday, January 23, 2004 7:51 PM CST Way to go Nolan. I have been keeping up with your progress from Salisbury. You are one tough kid, but then again all the Transplant kids are tough....fighters. We will continue to keep you, your family and all the other transplant kids in our prayers. Love to all Traci, Kyle and Cody Traci Sharp <Sharp@24@wmconnect.com> Salisbury, NC USA - Friday, January 23, 2004 6:39 PM CST What great news on Nolan! We are very excited on his progress. Jack is doing well too! Maybe we will catch you all at Duke sometime. We go back the first week of march for 9 month test. gina shuler <ginashuler@sbcglobal.net> springfield, mo usa - Friday, January 23, 2004 11:28 AM CST Dear Nolan, We just got back from Duke and we sure missed seeing you like we did last time. I am so glad to hear about all the good results. That is wonderful. You are doing so well. I hope you will be home in no time. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Friday, January 23, 2004 6:45 AM CST Dear Nolan, We are so glad that you are feeling better, we all prayed for you today up here in Canada, before you went into surgery. I' ll phone you mon later this week. Hugs and kisses Luv Miss Beverely <bevehope@shaw.ca> Calgary, AB Canada - Friday, January 23, 2004 1:33 AM CST Nancy, I'm sorry to hear about Nolan's line being infected. I do think you will like a port though. Alli has had hers since May and we have had no problem (knock on wood!) We have an EMLA cream that we put over the port about 30minutes before it will be accessed, and it numbs the skin! Alli hardly even feels it and hasn't cried in forever! I'm thinking of you and praying everything goes well and Nolan feels Much better soon! Love, Jennifer Restemayer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net > Bismarck, ND Usa - Thursday, January 22, 2004 9:01 PM CST Nancy, I am so sorry to hear that Nolan is back in the hospital. Although your family has remained in my prayers, Cooper and Mackenzie will get an extra one. I hope you get some sleep and Nolan is back to his happy, smiley self again soon. Katie Boulder, CO - Wednesday, January 21, 2004 2:40 PM CST Dear Nancy---As soon as I received your Christmas letter, I logged on to your journal and started reading. The only thing that I had heard was that Nolan was sick which does not nearly touch the magnitude/miracles that you have endured during 2003. I became so engrossed in your story that I grabbed a hot tea and 'snuggled up' to the computer every free moment I had. Your story is truly a testimony to your personal strength and walk with God. I always knew that I was singing next to an angel but now I know that is true in every aspect of your life. I am thankful that Nolan is doing so well and have added him to my prayer list. Kirt and I would love to contribute in any way we can that would be beneficial to you and yours. Thank you so much for catching me up to speed with your new life in Colorado. It just seems like yesterday when we were singing together at First Baptist Katy and talking during Wayne's stories. I think of you often!!!!! Love--Jody Fadely Jody Fadely <jodyf@hal-pc.com> Katy, TX USA - Tuesday, January 20, 2004 8:42 PM CST hope you'll have a great trip. we continue to keep nolan and all of you in our prayers jeff and stephanie beck <jbeck@kdhosiery.com> mt. airy, nc - Monday, January 19, 2004 1:41 PM CST Hi! Sorry I haven't written in awhile, I've been sick and not feeling up to writing. It is so cold here. It snowed and snowed here today! Wyatt loved playing in the snow. He took his favorite toy (his tennis ball) out with him. He played and played for hours! Anyway, I hope you are doing well and it isn't too cold by you. Big hugs from me & Wyatt! Love MJ - http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk "A life spent making mistakes is not only more honorable, but more useful than a life spent doing nothing." -George Bernard Shaw MJ <TWEETYROLL88@aol.com> Ny hugs and hope, - Monday, January 19, 2004 10:38 AM CST A weekend in NY!! How Cool! I hope you both have the greatest time! What a great present. Tell Sam I said "Good Job!!" I'm so glad Nolan is doing so well. It's so great to see our babies doing GREAT! I hope you soon will be off the home IV's. Soon you will be off most meds and will be trying to figure out what to do with your time! LOLOLOLOL Please know you are always in my prayers! Love and Hugs Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne , CA - Friday, January 16, 2004 5:31 PM CST glad nolan is doing good. we will keep him in our thoughts and prayers as he goes thru his tests jeff and stephanie beck <jbeck@kdhosiery.com> mt. airy, nc - Friday, January 16, 2004 11:52 AM CST Thinking of you all and wishing you great blessings! Kristi Daniel <kryste1122@yahoo.com> Little Elm, TX USA - Monday, January 12, 2004 4:37 PM CST Just stopping by to wish you all a Happy New Year! Thanks for mentioning Jillian on your web site. She always had a little crush on Mr. Sam. God Bless! Laura, Ken, Nathan & ^^Angel Jillian^^ http://caringbridge.org/fl/jillian/ Naples, FL - Tuesday, January 6, 2004 8:48 AM CST happy new year all! jennifer chapel hill, nc usa - Monday, January 5, 2004 5:38 PM CST Dear Nolan and family, We wish you all a very happy new year!! We are so glad that you are improving so much!! Love, Harmen, Jan and Jacomien <janprakken@aol.com> Durham, - Thursday, January 1, 2004 10:09 PM CST Dear Friends We would like to send you our warmest wishes for the New Year. May 2004 bring joy, happiness and health to your family! We will never forget you! Love Savvas-Marianna Koumpouras (Angels'Hermes and Aristofanis parents) Marianna <ermiskub@yahoo.gr> Lamia, Greece - Thursday, January 1, 2004 7:23 AM CST  Alicia & ^^Angel^^ Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Thursday, January 1, 2004 0:38 AM CST Seems as though every time I come here, I have to write "haven't signed in for a while". And, that is true again. Please know that I continue to think of and pray for you. I am so glad to hear that things are going well for you guys. I pray that continues to be the case. Enjoy this New Year with Christ! I'm sure you will! Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC - Tuesday, December 30, 2003 11:14 AM CST We are so glad to hear that Nolan is making leaps and bounds. I guess all that therapy is finally paying off. We hope you all enjoyed the holidays with your precious little boy. Have a happy new year. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> Decatur, IL - Monday, December 29, 2003 10:24 PM CST Sam and Nancy, We are so very pleased and thankful to God Almighty for Nolan's progress. By your letter it sounds like things are coming along splendidly. HE has it all in his hands and is in control of all. I know Christmas must have had a very special meaning for your family this year. We are thinking of you and praying for you and Nolan's complete, miraculous recovery. Let us hear from you in more detail when you feel up to it. Sam, I miss the good ol days on the links! In Christ, Larry Singley Larry Singley <Pensacolakid@sbcglobal.net> Houston, Tx USA - Monday, December 29, 2003 10:01 AM CST I am delighted that Nolan continues to do so well. He is one cute little guy! May the Lord continue to be your strength. Stephanie and RachelJoy <sstrom@quik.com> - Sunday, December 28, 2003 10:45 PM CST Hope you all had a Merry Christmas and praying for peace and joy for the coming year. http://www.geocities.com/calebwaddell Kelly Waddell <kellywaddell@hotmail.com> Southaven, MS USA - Friday, December 26, 2003 11:45 AM CST Dear Nolan, I hope you had a great Christmas Eve with your visitors, and an even happier Christmas Day!! Our prayers are with you. Get your mommy to give you a big hug from me! Luv from Miss Beverley <bevehope@msn.com> Calgary, Alberta Canada - Thursday, December 25, 2003 1:43 AM CST Merry Christmas you guys, hoping 2004 brings much love and happiness and health! Chris ~ Gooch's Site ~ - Wednesday, December 24, 2003 10:35 PM CST merry christmas all! i hope you are all able to stay healthy. how fabulous that nolan is climbing stairs--what a little trooper! i hope you all enjoy a wonderful holiday season. be sure to let me know when you make another trip to nc! jennifer chapel hill, nc 27516 - Wednesday, December 24, 2003 9:42 PM CST Merry Christmas! Cathy Peters <www.caringbridge.org/canada/isobel jacon@shaw.ca> - Wednesday, December 24, 2003 4:27 PM CST Merry Christmas We continue to pray for God's Blessing on your beautiful family. He is good. The Walega's Gary and June Walega <gjwalega@cleanweb.net> lafayette, COLORADO usa - Wednesday, December 24, 2003 9:15 AM CST Just a quick note to say Hi. I check on you but don't sign that often. I wish you and your family the greatest Christmas ever! May next year hold Health and Happiness. Merry Christmas and Happy New Year! Love and Hugs, Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Tuesday, December 23, 2003 9:06 PM CST Stopping by to wish you a MERRY CHRISTMAS!! With Hugs, The Bowman's www.caringbridge.org/page/andrewshope <ahope4Drew@aol.com> - Tuesday, December 23, 2003 7:34 PM CST  Love everyone at Post Pals Cori <info@postpals.co.uk> - Tuesday, December 23, 2003 4:17 AM CST Hey Nolan, I hear you are starting to talk and walk - that's great. And I'll bet Santa will really be good to you this year. Have a great Christmas and New Year. Max's G-Pa J. Burbank, Il USA - Tuesday, December 23, 2003 3:58 AM CST "Fear Not," said the angel, "For I bring you tidings of great joy. For unto you is born this day in Bethlehem - a Saviour who is Christ the Lord." "And this shall be a sign unto you. You shall find the babe wrapped in swaddling clothes and lying in a manger." MERRY CHRISTMAS! In Love & Prayer...Eleasha & Cody <ehilliard@verizon.net> www.forcody.org, - Tuesday, December 23, 2003 1:11 AM CST Happy Holidays to all of you The Ashley's (Max's Friends) Grayslake, IL - Monday, December 22, 2003 12:38 AM CST Dear Nolan, I heard that your big sister was baptised today, how wonderful! You are in my thoughts and prayers daily, be a good boy for mommy and daddy. Luv Miss Beverley <bevehope@shaw.ca> Canada - Monday, December 22, 2003 2:56 AM CST Dear Nolan, Have a wonderful Christmas and give mommy a big hug from me!!!! I miss you all very much. Luv Miss Beverley <bevehope@msn.com> Calgary, Alberta Canada - Sunday, December 21, 2003 4:32 AM CST Hi Nolan!! It's so wonderful to hear of your progress!! Keep up the good work, and stay away from this nasty flu!! Hopefully we will see you in clinic again soon!! Love, Tracie Doug, Tracie, ^^Angel Douglas^^ and Cam <trc871@aol.com> Colorado Springs, CO USA - Friday, December 19, 2003 8:30 AM CST Just wanted to wish you all a great holiday and a Healthy and Happy New Year!  Angel Chris ~ Smile Quilts ~ chrisrusso_@hotmail.com - Saturday, December 13, 2003 10:14 AM CST Dearest Nolan I gently wrap warm thoughts of you in my christmas prayers For Heaven to smile on you For Angels to watch over you and the love of Jesus to fill your heart Have A Merry Christmas God Bless You And Your Family This Holiday Chris Ullrich - Grand daughter dx with AML M5 <c_ullrich@msn.com, www.caringbridge.com/page/isabellaledesma > Hemingford, Ne USA - Saturday, December 13, 2003 10:03 AM CST Just a note to say Praise God From Whom All Blessings Flow. Nolan, guess you know who cooks supper (dadadada). I Pray for you lots and am praying for you right now. We have a prayer chain at our new church and you have been the star praise item several. You might say that you are #1 on the star of praise. Hi to the rest of the family Sam, Nancy, Coop and Kenziegirl. I love y'all Pastor Dwayne <drbartley@shaw.ca> Calgary, AB Canada - Friday, December 12, 2003 11:18 AM CST Wonderful update! :) I am smiling big here!! :) :) Merry Christmas to you all. I love your front page picture, you are a beautiful family. Eileen www.caringbridge.org/il/ej - Please, all are welcome to visit. Thanks - Thursday, December 11, 2003 8:52 PM CST How wonderful to read that things are going well for Nolan!! Best wishes for a wonderful and blessed holiday season.......thinking and praying for Nolan and your family.....God Bless Elisabeth va - Monday, December 8, 2003 9:03 PM CST what a wonderful entry to read. i am glad that things are going so well. and wow--nolan saying "dada" and pulling up--how wonderful! it was nice to read something so inspiring in the midst of all my studying for exams. i thought you all would like to know that we have now discussed hurler's in my immunology class too! (we had a case conference on MPS and MLS in biochemistry earlier this semester.) i thought you would appreciate the exposure that first year med students have. well, i hope you all remain healthy and enjoy the holiday season!! jennifer <jemadden@davidson.alumlink.com> chapel hill, nc usa - Sunday, December 7, 2003 4:54 PM CST Hello to all of you! So sorry to be so long in "checking in". Here it is Dec. 6 and I can't imagine where my time has gone! So good to hear (from Nana) and read all the good things happening to Nolan (and the entire family). God is so good! I can imagine some of what you are experiencing with the meds, clinic, therapy, etc. It can really take a toll on emotions, etc., but you are all handling it with God's grace and strength. I'm sure this Holiday Season will be a very blessed and special one for all of you. Enjoy! Enjoy! Enjoy! Cherish every moment! Make some beautiful memories! You are an inspiration to so many! I think God is very pleased with the way you are handling the task He has assigned to you! Merry Christmas and may 2004 be the very best year for you! Love you, Winona Foley Garland, TX - Saturday, December 6, 2003 11:21 PM CST Things will get back to normal...Your normal that is...I am the mother of 2 childrens with hurlers...I have 3 kids, Kirstin not affected,9 Tommy 6 and Kaitlyn 7 months both affected...We are on Day +14 for Kaitlyn's BMT in Minnesota...Tommy had his BMT 1-14-99..Doing well ...I was told while I was pregant with Kaitlyn she was unaffected with MPS1..When she was 13 days old they called to tell me they made a mistake...Hug your kids and love them is the best advice for everyone... Susan Ries <Jagators24@msn.com www.caringbridge.org/page/tommyries> Jacksonville, Fl - Saturday, December 6, 2003 10:27 AM CST Hey Nancy, I'm so happy to hear how well Nolan is doing. Keep up the good work buddy!! Soon you will be running!! I check on you all the time but I'v been bad about signing the guestbook. Please know you are in my prayers. Love and Hugs Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Friday, December 5, 2003 10:14 AM CST We will pray for Nolan and his family. He is "kinfolk". GOD has a plan for Nolan. George & Pearl Hodges <g1hodges@swbell.net> Nederland, Tx USA - Wednesday, December 3, 2003 3:07 PM CST A good Nolan update is always a good day for me! Thanks for taking the time to keep us informed, so that our prayers don't become stale! :) Thank You, Lord! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Monday, December 1, 2003 10:21 PM CST Dear Nolan, Pasture David showed me your new pictures, you sure are growing!!!! Give Mommy a big hug for me. Miss Beverley <bevehope@msn.com> Calgary, Alta Canada - Saturday, November 29, 2003 4:28 PM CST OOPS, I didn't say hi speifically to Coop and Kenzy so I thought I had better. I'll be over soon to beat you in football Cooper!! McKenzie, you are AWESOME!! Pasture Dave David Slone <editsystem@aolc.om> Calgary, Alberta Canada today - Saturday, November 29, 2003 0:19 AM CST Hey Guys, Hey Nolan, hope you are doing good today. Happy Thanksgiving. We're in Canada visiting you know who. Just sitting here thinking about you so I thought I would say hey. We'll see you in a couple of days, you're in our thoughts and prayers. Love you guys, Pasture Dave Pasture Dave <editsystem@aol.com> Lafayette, Co USA - Saturday, November 29, 2003 0:16 AM CST Hey Ramsey's!!! Just wanted to wish you a Happy Thanksgiving and tell you that we miss you all! Glad everything is going well! Love, The Martini's Andrea Martini alexupdate.com <amartini@glencove.com> Gig Harbor, Wa - Thursday, November 27, 2003 11:17 PM CST Dear Nolan, There isn't a day that goes by that you aren't in my prayers and thoughts. Luv you, Miss Beverley <bevehope@msn.com> Calgary, Ab. Canada - Thursday, November 27, 2003 4:47 AM CST Happy Thanksgiving Nolan & Family. I was just thinking about the time we were in the fishtank room and Nolan was really enjoying his crackers. He had them all over his clothes and they were falling out of his mouth. Jillian said, "That is just disgusting." And I said "That is just a baby on steriods." She smiled because she could relate. Feel free to make a mess with your Thanksgiving dinner little guy. You deserve it. God Bless. Laura, Ken, Nathan & ^^Angel Jillian^^ http://caringbridge.org/fl/jillian/ Naples, FL - Wednesday, November 26, 2003 9:46 AM CST Hi Nolan, give mommy a big hug for me. I love you! Miss Beverley <bevehope@msn.com> CalgaryAb, Ab Canada - Wednesday, November 26, 2003 3:38 AM CST hi nolan is a handsome little guymy daughter is 2 years old and we found out 2 months ago that she has hurlers syndrome and it is a very hard time and she has started taking replacement treatment she has 2 already and she will be taking them every 2 weeks we live in ky and we travel to cincinnati for her treatment.we like to know more about nolan he is just the cutest little fellow i have ever seen. kathy and katilynn preston <katilynnsmom@yahoo.com> tomahawk, ky usa - Tuesday, November 25, 2003 10:44 PM CST Hey there Ramsey's I am rejoicing with you on great reports about Nolan. This little flu thing is serious but God can handle it. We sure miss y'all. CAlgary has lots of snow for you now Nancy. We are trying to save it for the whole family. We really miss you. I have been playing the video that was made of our last day in Colorado and Sam you sound better and better. But I am just like you I am not going to cry. Love you and tell Nolan to get growing that hair cause mine is growing real well. Hey Coop, Hey kenzie Pastor Dwayne <drbartley@shaw.ca> Calgary, AB Canada - Monday, November 24, 2003 4:05 PM CST Good Afternoon Ramsey Family! It has been too long since I signed in here, but you guys have been on my mind so much! I am praying that the flu stays far away and that God continues to keep your family healthy! Nancy, I hope you had a wonderful birthday. So glad to hear that Nolan is doing well. Talk to you soon, have a wonderful Thanksgiving. Love, Cindy Cindy Scobee <cdscobee@msn.com> Scotch Plains, NJ USA - Monday, November 24, 2003 10:39 AM CST  ~~KATIA'S PAGE~~ TRACY AND KATIA <TMSOL8@AOL.COM> - Saturday, November 22, 2003 7:16 PM CST Dear Ramsey's It's so great to hear about Nolan's progress! We will pray that the flu stays away from your precious family.I'm so encouraged by Nolan's good report. We are so sorry for the loss of our friends. We will pray for their families also. Monty and Kim Stone Houston, Tx - Saturday, November 22, 2003 2:57 PM CST Nolan, you are in our thoughts & prayers. We hope your family has a nice holiday and you continue on the road to feeling good & doing great buddy.  Angel Chris ~ Smile Quilts ~ chrisrusso_@hotmail.com - Thursday, November 20, 2003 6:32 PM CST Nancy, Thank you for taking the time to continue to update everyone on Nolan! Tammy Rajabi <tammyrajabi@aol.com> Katy, TX - Thursday, November 20, 2003 1:10 PM CST As the holidays approach, take time to reflect on how far you've come this year. It's amazing how strong we are with the Lord's help. You are an amazing family and I pray for your continued strength. Kay Hodges <kay.hodges@dhs.state.tx.us> Odessa, TX - Wednesday, November 19, 2003 10:20 AM CST Hi Nolan, sounds like you are doing well - keep up the good work. Max's G-Pa J. Burbank, Il USA - Monday, November 17, 2003 12:19 AM CST Hi Baby Noooolan and Family! We miss you so much! Thanks for the kind words! We just wanted you to know that we too check your web site often, although we don't always sign in. We pray for Nolan's continuing health and for your entire family. Hope to see you again soon. We love you! Marian, Mike and Mikey The Mitchem Family <mitchem@wwdb.org-----www.caringbridge.org/nc/princessmadison> Riverside, CA - Sunday, November 16, 2003 9:16 PM CST Hey MR. and MRs. Ramsey, This is Megen white from FBC katy! Praise the LORD on the news on November 5th. I do often think of your family. God Gave you all a Gift with Nolan! And of course Cooper and makenzie. Hope you can come and visit us sometimes when life settles down a bit for you! You are all LOVED! Love Meg Megen Joy White <mjwhitekt77@yahoo.com> Katy, Tx USA - Saturday, November 15, 2003 6:33 PM CST  Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Friday, November 14, 2003 8:11 PM CST It has been awhile since I checked in, but you have never been far from my thoughts and prayers. I am so glad Nolan is doing well, what a praise of thanksgiving. By the way, I still reach for the horn everytime I drive down Highland Knolls to go to HEB!! Old habits die hard! :) Katy misses the Ramseys. Tammy Rajabi <tammyrajabi@aol.com> Katy, TX - Friday, November 14, 2003 8:32 AM CST I had originally planned to visit as many caringbridge sites as possible, and leave some encouraging words, prior to my daughters passing. Unfortunately her passing came sooner than we had expected, but longer than any of her doctors expected. Another angel takes flight. My daughter Pam had a brain tumor and was fighting the fight since November 4th, 2002, after the birth of her daughter (Casey Morgan). My youngest daughter, Karen, set up a caringbridge website for Pam. Karen's friends mother shared a prayer with us, that I would like to share with your family. It's called DON'T QUIT: Don't Quit - When things go wrong, as they sometimes will, When the road you're trudging seems all uphill, When the funds are low and the debts are high, and you want to smile, but you have to sigh, When care is pressing you down a bit - Rest if you must, but do not quit. Life is queer with its twists and turns, As every one of us sometimes learns, And many a fellow turns about, When he might have won had he stuck it out. Don't give up though the pace seems slow - You may succeed with another blow. Often the goal is nearer than it seems to a faint and faltering man; Often the struggler has given up when he might have captured the victor's cup. And he learned too late when the night came down, How close he was to the golden crown. Success is failure turned inside out - The silver tint of the clouds of doubt, And you never can tell how close you are, It may be near when it seems afar, So stick to the fight when you're hardest hit, It's when things seem worst that you mustn’t quit.(Just call on Jesus). I would also like to share a saying that was on the card my wife Diane picked out, and we bought for Pam: If you were a star That wasn’t expected back In the universe For a thousand years, I’d wait. If you were the sky And everyone went inside When you got sad And started to rain, I’d stay. And if you were a peach And the world decided to get rid of all peaches, I’d pick you up, Put you in my pocket… AND KEEP YOU…. FOREVER.. Prayers have scientifically been proven to work. REMEMBER NEVER GIVE UP THE FIGHT. You are in our prayers. GOD bless you all. Frank father of ANGEL Pam (www.caringbridge.org/ny/pamostrowski) <frmurato@nyct.com> SYOSSET, NY USA - Thursday, November 13, 2003 1:30 PM CST So glad everything is going well in Co. It is really great to hear good news with the enzyme levels. That is what every MPS family wants to hear. Your family are always in our prayers. Sheila, Jordan's grandma Taylorville, Il - Tuesday, November 11, 2003 9:09 PM CST Hi Ramsey's!! Great news about the enzyme level!!! That's what it's all about!! I will pray for you all to get through flu season without any problems. Take Care, love, Cathy Cathy Peters <www.caringbridge.org/canada/isobel jacon@shaw.ca> - Tuesday, November 11, 2003 11:32 AM CST Hey guys, Just wanted to say a quick hello and tell you all how much John and I miss you and love you. Take care of yourselves. Can't wait to see you all again. Sam, Nancy, Sean and Michelle...give all the kiddos a hug from us. Love, Aunt Amy and Uncle John Amy Heilhecker <ammtcu@yahoo.com> Arlington, TX - Tuesday, November 11, 2003 10:56 AM CST Hi! How are you? How was your Halloween? Mine was pretty boring. We didn't have many trick-or-treaters here. Wyatt didn't enjoy Halloween very much...He barked and barked at everybody who came. Wyatt says I ruv yoou...That means I love you...I hope your doing well! Hugs, MJ & Wyatt http://www.caringbridge.com/ny/mjpurk MJ <TWEETYROLL88@aol.com> ny hugs and hope, - Monday, November 10, 2003 10:11 AM CST Great news about the enzyme test. We pray that Nolan stays healthy and is walking by January! That would be a great New Year's present! We are thinking of and missing you guys. Love, Carrie, Patrick, & Jordan Horton Carrie Horton <iteach2u@hotmail.com> - Sunday, November 9, 2003 9:59 PM CST Sam and Nancy, Although you don't know me, I had heard about Nolan from Katie Zuetell. You have been in my thoughts and prayers often and I have put your family on the prayer chain at our church. Please know that along with all your friends and family, the congregation of St. Andrew Presbyterian in Boulder is also praying for you. Becky Harris <beckenharris@aol.com> Lafayette, CO USA - Sunday, November 9, 2003 8:25 PM CST I've just started checking on your site every Sunday, so I missed the latest until today, but what awesome news! I was mostly praying about him staying healthy and for perfect enzymes, so I am rejoicing in the Lord and His wonderful care of adorable Nolie! I still pray for sweet Nolan everyday, but I understand exactly how you feel about KNOWING that. When I had cancer, knowing that even people I had never met were praying for me gave me so much hope! Because I check on 24 kids every day, to post to every one would take 4-6 hours a day, so I hope you understand that I rather put that time into prayer! You are the one who gave me so many CB addresses of kids to pray for, including Noah, so I feel a very strong bond to you and Nolan! You are definately on my "list" for a long time to come!!! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Sunday, November 9, 2003 4:37 PM CST To the Ramsey Family, My husband and I visit your site very often and when I read your entry the other day about how you were feeling down because people were not sharing their thougths as often with you, my heart broke. What you have been through has been a long journey that is not over. Please know that your family is in my thoughts and prayers daily. I can not even begin to imagine what you guys have been throught with little Nolan. I have two healthy boys and you and your experience has reminded me just how lucky I am. Nolan is very lucky to have parents like you who can take care of him and who does take care of him. I am so glad to hear that Nolan is doing better. God has provided a blessing through Nolan to many of us who read your site. I will continue to pray for Nolan and for your family. Stay strong!!! Stephanie Beck <smbeck@surry.net> Mt Airy, nc - Sunday, November 9, 2003 1:17 PM CST Hi, I read your entry after I wrote my letter---WOW- what exciting news about Nolan and his enzymes- and walking soon! Praise God- no signs of Hurlers- keep going Nolan- you are a fighter and doing a great job! Nancy, you are always in my thoughts- what your days and thoughts must be like- can't even imagine. Hugs and God Bless. Elisabeth va, - Saturday, November 8, 2003 7:55 AM CST Dear Sam & Nancy, I am so excited that Nolan is doing so well. I will continue to pray for him and for you. It is such a blessing to see your faith and trust in the Lord through all of this. Shelly English <shelly.english@earthlink.net> Katy , Tx - Friday, November 7, 2003 8:47 AM CST hey there. i am sorry that i have not posted in awhile, but i have not actually used the internet for anything other than studying for awhile. it was so good to see you guys in nc!! it was nice to finally meet sam's mom too. congrats on the fabulous enzyme levels! nolan is such a little trooper. good luck all and stay healthy! (wish me luck too as i exams every week for the remainder of the semester.) jennifer chapel hill, nc - Thursday, November 6, 2003 7:01 PM CST Hi Baby Nolan!! It was WONDERFUL to FINALLY meet you yesterday!! The second I saw you, it took my breath away - you are so very special to me!! I can't wait to see you again so I can give you a great big hug (after washing my hands, of course!!) We are praying for you everyday that you continue to do well, and stay healthy through this nasty flu season!! (I used to think of it as the "Holiday Season," but now it's more like the "Viral Season.") Love you guys!! See you in 2 weeks!! Love, Tracie Doug, Tracie, Angel Douglas, and Cam <trc871@aol.com> Colorado Springs, CO USA - Thursday, November 6, 2003 1:00 PM CST Praise the Lord. What wonderful news. We are checking in periodically to see how you are doing. Jack is doing well also. Like you, we love our new clinic. We go to St. Louis once per month and they are waiting for us when we get there and we are in and out in a heartbeat. We are so glad that things are going well for you. We sometimes feel the stress that you mentioned but then I stop to think about what a blessing these children are. We would give anything if Jack and Noland had been born without this awful disorder but we see God working through their healing. David & Gina Shuler - Caringbridge.org/mo/jackshuler <davidshuler@sbcglobal.net> - Thursday, November 6, 2003 10:04 AM CST Congratulations on the nrmal enzyme level Nolan. I pray that you will stay healthy throughout this cold and flu season. I will continue to check up on you and pray for you Stephanie Boille ( Angel Bella's cousin) <BOILLESA@hotmail.com> winnipeg, manitoba, - Wednesday, November 5, 2003 9:46 PM CST Hey guys I am glad to hear that things are going so great for y'all!!! Nolan will be off those meds before you know it!!! Hugs and Kisses from Aaron and his mommy!! Trisha Athy <aaronsmom1027@aol.com> Belleville, IL USA - Wednesday, November 5, 2003 9:45 PM CST Hope you had a Happy Halloween. I am so sorry about your little friend Madi. Her family is in my prayers. Love, Lisa Post <ltjpost@cox.net> - Saturday, November 1, 2003 7:09 PM CST Hey guys! We wanted to let you know that we are always thinking of you and you are in our prayers. I wish I had the words that could heal all your family's pain but just remember that the 'gift' you will receive will far outweigh any pain and suffering you have gone through. Never forget that. I know it still doesn't explain why we suffer and why we have to go through trials and tribulations but never ever think that it all goes unnoticed. Your family and especially little Nolan are going to be the strength and hope and faith that will one day save someone's life or many lives and help bring that person(s) to God. Your faith and strength will show others what God's love can do...I know it helps me not to give up and I wanted to thank you for that gift that your faith gives all of us. I always think of Job when things get difficult and how Job never stopped believing in God and His plan. Please give all your family our love and tell Nancy I hope she has a well deserved great time in Canada...it's way too cold there for me lol! Eric & Laura Krueger <eric6666@sbcglobal.net> Katy, tx USA - Wednesday, October 29, 2003 11:51 AM CST We are just checking in and praying that things are going well for you guys. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> Decatur, IL - Tuesday, October 28, 2003 6:37 PM CST Glad to hear the Duke visit went well. My fingers are crossed for Nolan's successful steroid wean! Love, Lisa Post <ltjpost@cox.net> - Monday, October 27, 2003 4:43 PM CST Hi! How are you? I still have a cold...:( Wyatt has been very good and cuddly! He actually has a new website! If you want check it out go to, www.freeweb.com/mj88 . He'll have a guest book soon so check back and let him know you have visited! Hugs to you, MJ & Wyatt www.caringbridge.org/ny/mjpurk www.our-sma-angels.com/Margaret MJ <TWEETYROLL88@aol.com> ny hugs and hope, - Monday, October 27, 2003 10:14 AM CST So glad to hear that Nolan continues to do well and is healthy! We are certainly praying away germs from you all. Praise the Lord for the good report from the 6 month studies, and that all will continue in the path of health, which is blessed with the Lord's amazing hand. Carolyn Wyman <sythismom@yahoo.com> Belding, MI Trimper supporter - Sunday, October 26, 2003 1:08 PM CST Hey Sam and Nancy, Thank you for your faith and example. Your strength is a beacon that shines for God in spite of seemingly overwhelming circumstances. It has made my faith stronger. I'm glad Susanne and I have gotten to know you guys. We hope to know you better. Tell Nolan "Hi" Mike Lair Erie, CO - Saturday, October 25, 2003 3:11 AM CDT I had originally planned to visit as many caringbridge sites as possible, and leave some encouraging words, prior to my daughters passing. Unfortunately her passing came sooner than we had expected, but longer than any of her doctors expected. Another angel takes flight. My daughter Pam had a brain tumor and was fighting the fight since November 4th, 2002, after the birth of her daughter (Casey Morgan). My youngest daughter, Karen, set up a caringbridge website for Pam. Karen's friends mother shared a prayer with us, that I would like to share with you and Nolan. It's called DON'T QUIT: Don't Quit - When things go wrong, as they sometimes will, When the road you're trudging seems all uphill, When the funds are low and the debts are high, and you want to smile, but you have to sigh, When care is pressing you down a bit - Rest if you must, but do not quit. Life is queer with its twists and turns, As every one of us sometimes learns, And many a fellow turns about, When he might have won had he stuck it out. Don't give up though the pace seems slow - You may succeed with another blow. Often the goal is nearer than it seems to a faint and faltering man; Often the struggler has given up when he might have captured the victor's cup. And he learned too late when the night came down, How close he was to the golden crown. Success is failure turned inside out - The silver tint of the clouds of doubt, And you never can tell how close you are, It may be near when it seems afar, So stick to the fight when you're hardest hit, It's when things seem worst that you mustn’t quit.(Just call on Jesus). I would also like to share a saying that was on the card my wife Diane picked out, and we bought for Pam: If you were a star That wasn’t expected back In the universe For a thousand years, I’d wait. If you were the sky And everyone went inside When you got sad And started to rain, I’d stay. And if you were a peach And the world decided to get rid of all peaches, I’d pick you up, Put you in my pocket… AND KEEP YOU. Prayers have scientifically been proven to work. REMEMBER NEVER GIVE UP THE FIGHT. You are in our prayers. GOD bless you all. Frank father of ANGEL Pam (www.caringbridge.org/ny/pamostrowski) <frmurato@nyct.com> SYOSSET, NY USA - Friday, October 24, 2003 11:53 AM CDT Praying for all of yous always. Luv Beverley <bevehope@msn.com> Calgary, Alberta Canada - Sunday, October 19, 2003 10:18 AM CDT Good for you Nancy- getting away is very important! I'm very glad to hear that Nolan is doing well! I was extremly saddened by the loss of Noah. He sounded like a special boy- now he is a special angel in Heaven! Take Care! Cathy Cathy Peters <www.caringbridge.org/canada/isobel> St.Albert, AB Canada - Thursday, October 16, 2003 11:55 AM CDT Hi! How've you been? I'm finally am feeling better! I started some new medicines that really help! Wyatt is really sad today. My dad vacuumed the couch so Wyatt can't sit or lay on it. Oh well, guess he'll just have to snuggle with me! Hope you are doing and feeling GREAT! Love and hugs, MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/ MJ <TWEETYROLL88@aol.com> ny hugs and hope, - Wednesday, October 15, 2003 11:57 PM CDT Praying for you always!!!! LUV Beverley Beverley <bevehope@msn.com> Calgary, Alberta Canada - Wednesday, October 15, 2003 2:01 PM CDT Dear Ramsey's, It's hard to believe we have never met - with such rare and similar paths, from the same state. I take Cam to Denver Children's every Wednesday, usually mid-morning. I would LOVE it if we could coordinate our appointments one week so that we could FINALLY meet. The pictures of Nolan and your familiy are just adorable. I don't know if you ever saw pictures of Douglas in that "stage" of cyclosporin, but he looked JUST LIKE Nolan - it's uncanny. I was very touched by the entry. I am so glad Nancy got a much deserved and needed break. Hooray to Sam and your sisters for "holding down the fort." I really hope to meet you guys soon. All my love, Tracie Nicoll Doug, Tracie, Angel Douglas, Cam and Mama Jane <trc871@aol.com> Colorado Springs, CO USA - Tuesday, October 14, 2003 1:40 PM CDT Our prayers are with you, and we pray that things are going great in N.C. Can hardly wait to hear all the results. Luv Beverley Beverley <bevehope@msn.com> Calgary, Alberta Canada - Tuesday, October 14, 2003 11:17 AM CDT Dear Sam, Thank you for all the news.. We love all of you. Joelle <trramsey@swbell.net> Waco, TX - Tuesday, October 14, 2003 9:32 AM CDT We hope you guys had a safe trip to Durham and that the tests are going well. Sorry we missed you, but I am glad that we are home. We are waiting to get an update on how great things are going with Nolan. By the way, the pictues are adorable! Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> Decatur, IL - Monday, October 13, 2003 10:51 PM CDT Hey guys.....thinking of you!! I have had a hard time getting into the guestbook..........Nancy, hope you had a good trip......hugs to you all! Elisabeth - Friday, October 10, 2003 6:05 PM CDT font color=orange> Wishing you all the best and a Happy & HEALTHY Halloween from everyone at Smile Quilts  Angel Sandra with your Smile Quilt friends - Friday, October 10, 2003 4:33 PM CDT Hey guys, just checking in. Glad things are going so well. We are keeping you in our prayers. We love you guys Julee, Brian, Samantha and Jenna <jevans01@coair.com> Katy, tx - Thursday, October 9, 2003 4:29 PM CDT Dear Nolan, Thank you for letting your mommy come all the way up here to Canada to visit. We love her. She'll be giving you a big hug from me. I love you Nolan. Miss Beverley Beverley <bevehope@msn.com> Calgary, Alberta Canada - Thursday, October 9, 2003 12:11 AM CDT Glad to hear Nolan continues to inprove. I came to his site via Reese, who had just died, and before that from the Trimpers, who are now transplanting at Duke (they live near me here). Nancy is the one who got me to check on Noah, and then he was always so sick that I pretty much "adopted" him. Nolan and Jack have done so well in their BMT's that I often just pray for a transplant like theirs when praying for a new kid! Noah is happy now, really, really happy. It's the living we grieve over, of course, but I know that the Lord upholds His own. God will use this whole case in some tremendous way, I truly believe. Thank you for directing me to him so many months ago, Nancy. Carolyn Whitehurst Wyman <sythismom@yahoo.com> Belding, MI - Wednesday, October 8, 2003 8:46 PM CDT I praise God for the gift of Nolan. As I read at Noah's site of his passing, I admitt I was bewildered. All the kids that have suffered and lost their battle. Then I thought of Nolan and how well he is doing and I praise God all the more for His hand on your family. Tammy Rajabi Katy, TX - Tuesday, October 7, 2003 4:34 PM CDT Just wanted to stop by and check to see how you all are doing...you are in our thoughts and prayers daily... In Love & Prayer...Eleasha & Cody <www.forcody.org> - Sunday, October 5, 2003 6:48 PM CDT Tell 'Baby Nolan' that Madi says hi and she misses him. Love to all of you! The Mitchem's Mike, Marian, Mikey and Madi <www.caringbridge.org/nc/princessmadison> Riverside, CA - Sunday, October 5, 2003 3:09 AM CDT Hey guys... We still check up on Nolan almost everything and think of you often. You're still in our prayers. Hope things are well with the entire family. Dustin and Brandon really miss the kids and enjoy looking at the pictures on the website. Kim and Dustin <kanthony1@san.rr.com> San Diego, CA - Saturday, October 4, 2003 9:10 AM CDT Just a note to say hello! Hope all is well there and things are going good. Take care and God Bless!! Stephanie Conner Cana, Va - Friday, October 3, 2003 9:16 AM CDT Hello to all of you! I realize it's been a lonnngggg time since I wrote, but I have not forgotten any of you! Still praying for you and hope everything is going alright. Anxious to read an update. It is a blessing to read your journal entries! Love to all of you. Winona Foley Garland, TX - Friday, October 3, 2003 7:57 AM CDT My prayers are with you daily. I'm hoping that all is going well with you. You've come so far this year already! Kay Hodges <kay.hodges@dhs.state.tx.us> Odessa, TX - Wednesday, October 1, 2003 9:01 AM CDT Hi Nancy and Sam!!! Just a quick note to let you know that I have been faithfully praying for all of you - hope things are going well in Colorado and you are finally getting settled into a routine!!??!! Of course, with three kids, what is a routine???? I know I haven't written you in a while, but I did want you to know that you are still in our prayers and I check on you every day! Love, April April Kreger <kreger90@houston.rr.com> Katy, TX USA - Wednesday, October 1, 2003 8:48 AM CDT Hey! How are you doing? I'm still sick, UGH! Wyatt is very cuddly lately and loves to snuggle with me. I wish Wyatt could come and snuggle with you right now! Hope you are having a great day! Love MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/ MJ <TWEETYROLL88@aol.com> ny hugs and hope, - Monday, September 29, 2003 10:24 AM CDT Nolan, I am doing a project for school on you. I thought you would like to know. I hope you are feeling good and growing stronger everyday! Kaitlyn Willis <anela300@yahoo.com> Rochester Hills, MI USA - Sunday, September 28, 2003 1:34 PM CDT Hey all, just want to say hi....love and prayers to you...God Bless. Elisabeth va - Sunday, September 28, 2003 9:06 AM CDT Just wanted to let you know that you are still in my thoughts and prayers. My mom is back at Duke, getting ready for her transplant. She is just finishing up with some chemo and will be scheduled for her transplant in 2 1/2 weeks! I pray that things are continuing to improve with Nolan's health. In Him, Tiffany Eden <cmctiffanyeden@yahoo.com> Twin Falls, ID USA - Friday, September 26, 2003 6:58 PM CDT Saying hello and hoping all is well/better with Nolan and the whole family.....you are thought of many times a day in thought and prayer......God Bless. Elisabeth - Wednesday, September 24, 2003 8:05 PM CDT Just wanted to say hi and let you know you are thought of often and prayed for daily. Love, Mike, Marian, Mikey and Madi The Mitchem Family <mitchem@wwdb.org www.caringbridge.org/nc/princessmadison> Riverside, CA - Wednesday, September 24, 2003 5:10 PM CDT Just wanted to let you know that we are still praying for your family and we think of you often! Tammy Rajabi Katy, TX - Wednesday, September 24, 2003 11:09 AM CDT Hey there...just wanted to check in and see how things were going...Sorry to read youall have that nasty stomach flu...I wonder how it can fly from there to here and back again...germs sure are resourceful... Anyway...I am glad htings are going well overall...you all are in our thoughts adn prayers... In Love & Prayer...Eleasha & Cody <www.forcody.org> - Monday, September 22, 2003 3:30 PM CDT Hello, How are you today? How is your weekend going? I am home sick and Wyatt is keeping me company, snuggling in bed with me. If you check out my caringbridge website, you can see a picture of Wyatt and I snuggling in bed. Have a good day. Love, MJ www.caringbridge.org/ny/mjpurk http://www.our-sma-angels.com/Margaret/ MJ <TWEETYROLL88@aol.com> ny hugs and hope, - Monday, September 22, 2003 9:13 AM CDT Just checking on Nolan and the gang - trusting that all is going well, since I haven't heard anything negative from any other sites about him! Praise the Lord that He is working out all the needs of your sweet baby! Carolyn Wyman <sythismom@yahoo.com> Belding, MI Trimper supporter - Sunday, September 21, 2003 4:42 PM CDT So glad to hear that you are home! My bible study started back yesterday and everyone asked about Nolan! I thought is was so nice that they thought about you guys after us not meeting all summer. I know you are so happy to have Michelle there. I remember you talking about wishing you could move to Dallas and live in The Colony. Wish I could have met her while she was close to Frisco. Make sure you take care of yourself even though you are busy!! Love, Kyndal Kyndal Bass Frisco, TX - Saturday, September 20, 2003 8:47 PM CDT YEAH FOR GOOD NEWS! I know what you mean about your brain being on vacation. Mine has been there for several weeks now. Duke will do that to you. We are so glad you are adjusting to life at home. We should be going home next weekend, so wish us luck. We love and miss you guys. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Saturday, September 20, 2003 1:28 PM CDT Hi Nancy! I found Nolan's website! It is so great to see all the support that you have from around the world! I feel blessed to be working with you all! See you on Tuesday! Megan <mcburt77@juno.com> Broomfield, CO USA - Thursday, September 18, 2003 11:13 PM CDT Hi Ramseys! We just wanted you to know that we think of you every day, we pray for Nolan to do well and that you are always in our hearts. Although we are thousands of miles away, we feel that you are very close. Savvas-Marianna. Savvas-Marianna Lamia, Greece - Thursday, September 18, 2003 1:31 PM CDT So glad to hear that Nolan is home and his biopsy is negative for GvH. We continue to keep you guys in our prayers, you are not forgotten! Sounds like you are keeping yourselves really busy and have plenty of people around to give support. Hang in there...the prayers continue! God bless, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Thursday, September 18, 2003 0:06 AM CDT Hello to the whole Ramsey Gang----it sounds pretty hectic at your home...hope the virus leaves soon! Hope Nolan's progress keeps on.....what a blessing to have him home with your family. God Bless you all with healing hugs.. Elisabeth va - Wednesday, September 17, 2003 5:31 PM CDT Oh, don't worry - we aren't forgetting to pray for Nolie, and the rest of you! Glad Ana Carla and Shawn and Michelle are comfortable there - not that we would doubt it. "The blessing of the Lord makes rich, and He adds no sorrow with it!" Proverbs something ... :) Carolyn Wyman <sythismom@yahoo.com> Belding, MI Trimper supporter - Tuesday, September 16, 2003 4:51 PM CDT Glad to hear that Nolan is back home. We keep him in our thoughts and prayers! Kelly Waddell <http://www.geocities.com/calebwaddell> Southaven, MS USA - Tuesday, September 16, 2003 3:18 PM CDT Hang in there Chickie!!! It does get better. Glad to hear Nolan is out of the hospital and no GVH. I think of you constantly. Jeremiah is doing wonderful numbers wise but still no communication. That is great that you guys are doing the sign language thing. Doctors are just telling me that it is still early for Jeremiah and will have to wait for some drastic improvement. We got rid of our last IV med yesterday. They have talked about taking his central line out. Hopefully they will do that at Duke in October. I will try to call you soon. But you sound very busy. Love and Hugs XXXOOOO to you all. I will pray that you don't get the bug that is going through the family. Peggy & Jeremiah <caringbridge.org/ia/jeremiah> Davenport, IA USA - Tuesday, September 16, 2003 10:03 AM CDT Just checking in and glad to read in the guestbook that you all are back home. I pray that Nolan continues to improve. We love and miss you all. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Monday, September 15, 2003 9:36 PM CDT Sam and Nancy, it was so great to have you BOTH be able to come to church yesterday. Since I didn't get the chance to talk to you directly about it, I hope this means that you're starting to get settled back into your "home home" life and things are beginning to become stable again for your family. We continue to lift you guys up in prayer even as the amazing progress continues. Thank you both for being involved in the service yesterday - your spirit of service was an encouragement to me and I'm sure others were ecouraged as well. In His Love! Marcus Prickett Westminster, CO USA - Monday, September 15, 2003 1:25 PM CDT Glad to hear from the guestbook that y'all are home now, I was getting a little worried with no update. I guess this time no news truly is good news! I am still praying for y'all and check in daily. I'll keep praying, our great big Lord knows your exact needs! Tammy Rajabi Katy, TX - Monday, September 15, 2003 8:28 AM CDT Just stopping in to see how our little man is doing - looks like a guestbook entry says he's HOME and that his tests were good. YES! Still praying that all is well and that Nolie keeps getting better. Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Sunday, September 14, 2003 5:08 PM CDT I was just stopping by to see how things are going and let you all know that you remain in our thoughts and prayers...based on the guestbook entries...I am guessing you are home? I hope so...you all have remained in our thoughts and prayers daily... In Love & Prayer...Eleasha & Cody <www.forcody.org> - Sunday, September 14, 2003 3:36 PM CDT I'm so glad your home! It sounds like God is watching over you and making your adventure a smooth one! I'm praying for you all. May your life begain to get back to normal (whatever that is with our MPS babies :) Keep doing well Nolan!!! Love and Hugs, Tami Slawson <TLSlawson@aol.com> La Verne, CA - Friday, September 12, 2003 9:39 AM CDT It sounds like from the other guestbook entries, you're home!!! Yay! You all continue to be in our prayers. Randy, Robin, Jake and Grace Boger Lewisville, NC - Friday, September 12, 2003 7:11 AM CDT Hey Nolan.... Hear your home! YIIIPPPPPIE... Visit your site daily & so HAPPY to hear your better and back home. YOU GO!!!!! Our love, thoughts, & prayers to you and your family.. XOXOXOX Noreen (Reese's Nana in Maine) <talkntalkn@aol.com> - Friday, September 12, 2003 4:16 AM CDT Ramseys - Checking in from next door! I see you have lots of commotion at your house! :) Glad to hear Nolan is home and feeling better (for those of you who haven't heard an update, Nolan ate a little bit of taco meat this week! That's progress!). I think of you guys daily, and I hope you know that! I'm just a little leary of any possibility of bringing germs into your lives, but I'm thinking of you! HOpe things begin to settle down for you now! Andrea Erie, CO - Wednesday, September 10, 2003 9:53 PM CDT Nolan, we hope that you are feeling better buddy. Have not seen an update for a while and are a bit worried, but we know there are so many people praying for you to get better real soon. We will pray that God heals you from all threats of GvH and helps you feel better. Prayers continue. God bless, Debbie, Greg and baby Noah THe Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Wednesday, September 10, 2003 9:17 PM CDT hi there. i haven't signed the guestbook in awhile, but you have all been in my thoughts. i know that nolan is strong and will pull through this too! jennifer chapel hill, nc - Tuesday, September 9, 2003 8:46 PM CDT Hoping no news is good news! Love, Lisa Post <ltjpost@cox.net> - Tuesday, September 9, 2003 5:40 AM CDT Hi Baby Nolan! Madi asks about you all of the time. You and your family are in our hearts and our prayers. We miss you and we know that God is holding you in His hands as he has us through everything. I have a phylosophy that I stole fair and square from someone. I know you can relate. It goes like this, "I'm either UP, or GETTING UP!" There is NO TIME in our lives for down!! Praise God for that! Keep the faith! You guys are awsome! Give Cheeto MaGilla a BIG squeeze for us! Love ya, Madi's Daddy Mike Mitchem <mitchem@wwdb.org> CA - Tuesday, September 9, 2003 2:36 AM CDT Nancy - I talked with your mom at church last night and she said that Nolan got to go home and she got a good report too. Yea! I am thinking about you guys and keeping you in my prayers. Susan Gothard <sgothard@hitachiconsulting.com> Rowlett, TX - Monday, September 8, 2003 8:58 AM CDT Hope everything went well with the scope yesterday. We are pulling for all of you! Margaret Ciacciarelli <www.Mighty-Max.com> - Saturday, September 6, 2003 3:14 PM CDT Glad things are going better. We continue to pray for you. David Shuler - Saturday, September 6, 2003 10:46 AM CDT Dear Nolan and family,I hope Nolan's test went well yesterday.I was praying for him all day.Thank you so much for your prayers for my grandson,Mighty-Max.Everyone's support has meant so much to us. Mighty-Max's Granny Judie Sweeney <judithsween@aol.com> Chicago, IL USA - Saturday, September 6, 2003 10:32 AM CDT So tomorrow we can do the "home at last" dance again? PLEASE, Lord! Things will get better, and routine will happen - but sometimes the Lord just stretches us beyond imagination. Reminds me of something we often heard in college: "Only one life, 'Twill soon be past. Only what's done for Christ will last." What you are doing for Nolan and the prayers and support for the other families are ordained by the Lord as your ministry right now. Bless you that you do it so well, so very well. Carolyn Wyman <sythismom@yahoo.com> Belding, MI Trimper supporter - Friday, September 5, 2003 7:20 PM CDT Hi Sam and Nancy (and Michelle! It's been a long time - will you still be working for EDS in CO? I think it will be such a help to Sam & Nancy for you guys to be there.) I am sooooo glad Nolan is home. I hope his current condition will be much better soon and you guys can get into some sort of routine at home. I think of you almost daily and pray for you. Nancy, I will be praying for your Mom too. I love you, Toni Toni Christian <toni_christian@hotmail.com> Lewisville, TX USA - Friday, September 5, 2003 11:59 AM CDT Praying this morning that Nolie's procedure goes without a hitch and they get some answers! I hope he can be sent home soon!!! Love, Lisa Post <ltjpost@cox.net> - Friday, September 5, 2003 10:29 AM CDT Hey Ramsey family, I am sorry to hear about little Nolie's setback. I am sure that everything will be fine and of course you can't like that hospital as good as us, you are loyal! Ha Ha- tell them they better take good care of him, or else! We will be praying for you all and know that we think of you often. God Bless Bethany Kistler (Nurse 5200) Elon, NC USA - Friday, September 5, 2003 3:58 AM CDT So glad to hear from you; it seems that you have undying strength. Glad to hear that Nolan is doing better, wish we could see him, but we continue to keep you in our prayers. Kim, Mark, Dustin and Brandon <kanthony1@san.rr.com> San Diego, CA - Thursday, September 4, 2003 10:16 AM CDT Hello to you all! Sorry to hear Nolan's in the hospital, but happy to read tonight that he's doing better! I do not need to tell you to "hang in there", because that's what you have been doing for quite a while and God's hand is strong enough to not let you go. Matt. 11: 28-30 "...Come unto me...I will give you rest...take my yoke (commandments) upon you...ye shall find rest...For my yoke is easy, and my burden is light." One of your burdens was lighten to know Lorene's biopsy was fine! May God lighten the load of this episode of Nolan's too. Love to all of you. Winona Foley Garland, TX - Wednesday, September 3, 2003 9:02 PM CDT Hello: Jack's dad here. I was so upset to learn that little Nolan was in the hospital. He has been through so much. We are praying that this is just a minor bump on the road to his complete recovery. Dr. K is telling us we should be home by the end of the month. The nearest doctor to us with transplant experience is in St. Louis (a three hour drive). The plan is for us to do labs and see our pediatrician weekly and to see the St. Louis doctor monthly. If any symptoms develop, we will be rushing to St. Louis. This is scarey to us. As much as we hate clinic, it is three minutes away and the people know what they are doing (if they don't forget you are there). We feel like we are getting ready to walk a tightrope without a net. As you know, all we can do is to trust God to take care of these little boys we have been given. We will continue to pray for God's blessing on Nolan and your entire family David Shuler - Wednesday, September 3, 2003 5:17 PM CDT Ramsey's Sorry it has been so long since I have signed your guestbook, I just wanted to let you know I am still checking on Nolan and hoping that he is doing well! Sorry to hear that he has had a viral infection. Hang in there Nancy! You are such a wonderful and dedicated mother, Please know that we are thinking of you and hoping things get a little less hectic! Love, Jennifer & Allison Restemayer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Tuesday, September 2, 2003 10:34 PM CDT Hey Guys There must be something in the air! Jeremiah was admitted to the hospital here on Saturday. He had a rough week and ended up having bacteria in his central line. He had to get antibiotics for 3 days. He came home today and is doing well. Luckily nothing to bad. He was with Chris so dad got to experience the hospital life here. I am praying that what is going on with Nolan is nothing too. Hang in there Chickie, just when you think things are going to get easier something has to mess it up just to keep you on your toes. Love and miss you all!! Peggy & Jeremiah <caringbridge.org/ia/jeremiah> Davenport, IA USA - Tuesday, September 2, 2003 9:33 PM CDT Hello Family I just want to let you know you are in my prayers as you deal with Nolan being in Hospital. I wish I could be there to help out. But with the situation here I can't. I know the Lord knows and will make away for He knows best and knows all of our situations. I wanted to let you know that I love you all. The Lord has been so good to our family . Love from Nana ` :Lorene Davis <nanaingarland@ont.com> Garland, Tx Usa - Tuesday, September 2, 2003 6:10 AM CDT Nolan - stay strong little man. You will be in our prayers! Nancy - thank you so much for always checking in on my nephew, Max. Your kind words and experience mean so much to Max and his family. God bless all of you and bring you home soon! P.S. I love Nolan's specs! Dana Slevin <dslevin@comcast.net> Westchester, IL USA - Monday, September 1, 2003 9:03 PM CDT Nolan, we are so sorry to hear that you are in the hospital, but hope that if your auntie's prediction was correct, that you are already home tonight. We will keep you and your family in our prayers, hoping and praying that you begin to feel better soon. God bless, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Monday, September 1, 2003 7:59 PM CDT I'm glad to hear that Nolan may be released tomorrow, but sad to hear it may be GVH. I will continue to pray that it will go away quickly and that you can get back home with Nolie. He is just too sweet! May the Lord bless and keep Nolan in safety and health in Jesus' name. Amen. Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Sunday, August 31, 2003 9:31 PM CDT Hey Nolan, glad to hear you are feeling better! Hope mom and dad are too! Always thinking of you. Jesus loves you!The Stephensons Vera Stephenson <vera@reverenceacademyofdance.com> Louisville, CO - Sunday, August 31, 2003 6:57 PM CDT Just stopping by to check on Nolan and all of you all. Praying that he is soon home home again. Sending hugs and prayers. Martha White <MWhite6@charter.net> Princeton, WV - Sunday, August 31, 2003 5:58 PM CDT Nolan, stay strong. We know it is not easy. We are thinking of you and your family. Margaret Ciacciarelli <www.Mighty-Max.com> - Sunday, August 31, 2003 11:34 AM CDT Nolan, good morning little one. Hope your night went well. Just dropping in to say I love you and continue to pray that you're feeling better each day. Grammy and grandpa picked up Chase and Hunter this weekend. Uncle Shawn and I will continue to pack up some last items and get ready to head your way at the end of this week. I'm counting down the days! Take care dear family. We will see you soon. Love, Aunt Chelle The Colony, TX USA - Sunday, August 31, 2003 11:07 AM CDT Thanks Aunt Chelle, Thanks for updating and please pass the message along to Nancy and Sam that we are all out here praying for little Nolie to get better and be back at home where he belongs!!! These must be stressful times on the heals of returning home, but know our prayers will surround them with angels to keep them all strong!! God BLess! Love, Lisa Post <ltjpost@cox.net> - Sunday, August 31, 2003 10:12 AM CDT Aunt Chelle- Thanks for the update on Nolan. We are all praying for Nolan and your family. We love and miss you all. Love, Carrie, Patrick, & Jordan www.caringbridge.org/il/jordan Carrie Horton <iteach2u@hotmail.com> Durham, NC - Sunday, August 31, 2003 10:05 AM CDT Hang in there Nolan. You are one tough "little" guy. I miss your smile in clinic. You will remain in our thoughts and prayers. Lots of Love, Traci and Cody Sharp Traci Sharp <SharpT24@wmconnect.com> Salisbury, NC USA - Sunday, August 31, 2003 9:25 AM CDT Dear Nolan, We are still praying hard for you and your family.Mighty-Max seems to be fighting the same thing.I know that the two of you can do this.Stay strong! Max's Granny Judie Sweeney <judithsween@aol.com> Chicago, IL USA - Sunday, August 31, 2003 7:21 AM CDT Oh Nolie, did you eat mommy's cooking again???!!!! hehe Sorry Nancy! A good laugh always helps, right? Kiss my baby boy for me and tell him to get better. If you're gonna toss your cookies, aim for daddy! We love you all and will be praying that he gets out quickly. Take care! Andrea, Todd, Alex & Nick Martini <alexupdate.com> Gig Harbor, Wa - Sunday, August 31, 2003 2:28 AM CDT Nolan, I am sorry to hear that you are not feeling well. I hope you are feeling better soon! Your family remains in my prayers everyday. Katie Boulder, CO - Saturday, August 30, 2003 2:40 PM CDT Nolan, so sorry to hear you are sick. We hope you feel better soon. Margaret & Max Ciacciarelli <www.Mighty-Max.com> - Saturday, August 30, 2003 11:08 AM CDT Bummer! You were probably just beginning to get a handle on how to manage at home with all you have to do and now this. Was so sorry to hear Nolan had to go to the hospital. Know that we are keeping him and your family in prayer. Nancy & Ed Aman <nancyaman@charter.net> Sanfordn, NC - Saturday, August 30, 2003 9:22 AM CDT Hi Nolan, I hope you are feeling better soon.You are always in our thoughts and prayers.Stay strong little guy. Mighty-Max's Granny Judie Sweeney <judithsween@aol.com> Chicago, IL USA - Saturday, August 30, 2003 6:31 AM CDT We are praying that Nolan feels better soon and will be out of the hospital quickly! We love and miss you. Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Friday, August 29, 2003 10:35 PM CDT Hang in there little one. I'm sorry your stomach is all messed up! The family is praying hard for you. I know you're probably going to have a rough night tonight. You're in my thoughts. I love you. Love, Aunt Chelle The Colony , TX USA - Friday, August 29, 2003 9:14 PM CDT Glad to hear you all are adjusting to home home. May God continue to bless and keep you. Sending hugs and prayers. Martha White <MWhite6@charter.net> Princeton, WV - Friday, August 29, 2003 11:47 AM CDT Hey gang, It has been awhile since I have had computer time- but you guys are in my thoughts every day.....I can only imagine what your days and thoughts are....God Bless you all.....and your sister in law is right....you do have so much Power behind you.....God is Great! There are times I am doing something and I think what your days are like and how you must wish you were doing something else...please know that you are in my prayers, thoughts and that through your pain and heartache, you have so touched my life....Love and hugs to you. Elisabeth va - Friday, August 29, 2003 10:50 AM CDT Hi Nancy, Nolan and Everyone, Sounds like you're having to take a little time to get adjusted. Don't worry,Family, it will happen. I pray for you all, especially Nolie, at least once a day if not more. Hang in there, you'll all get it in time. With love, Judy Elliott <taejme@aol.com> Naples, FL - Thursday, August 28, 2003 8:49 PM CDT Hi Nancy & Sam,Cooper & Kenzie...... We are so happy and thankful you guys are home together again. Our prayers are with you for the days and months ahead. Tell the kids hi and give them kisses and hugs from us. " Now thanks be unto God, which always causeth us to triumph in Christ". 2 Cor. 2:14 Jimmie & Jeannie <jarjr2002@aol.com> Garland, Tx Dallas - Thursday, August 28, 2003 4:48 PM CDT Glad to see that you're back and Nolan (and family) has done so well throughout. Know that many people are still thinking of you and saying a little prayer daily. Hope that you feel more "in control" of your routine soon. Kim <kanthony1@san.rr.com> San Diego, CA - Thursday, August 28, 2003 11:01 AM CDT I am so happy to hear that Nolan is doing so well. Hoing that he gets better quick from the bug he has. I am sure that all will start to settle down soon, everything takes time. Enjoy your family TOGETHER and try to give yourself a little time by yourself with your husband...you both deserve it! KEEP UP THE GREAT WORK NOLAN>>> Sarah Urbandale, IA - Thursday, August 28, 2003 7:23 AM CDT Hey Nancy, Thank you Aunt Chelle for the update. This is just a quick note to say I'm praying for you. I'm so happy you are home. Things will become "normal" again soon. Hugs, Tami Slawson www.mpsrun.com <TLSlawson@aol.com> La Verne, CA - Thursday, August 28, 2003 6:27 AM CDT Sam, Nance, Kenzie, Cooper, and Nolan, Good Morning! Hope all is well there. I hope that Nolan is feeling better from his stomach bug. My thoughts and prayers continue to be with you all. I hope that you all have a great Labor Day weekend and God Bless to you all Stephanie Conner Cana, Va - Thursday, August 28, 2003 5:30 AM CDT Thank you for the up-date. Adjusting to change can be difficult. I have a hard enough time juggleing home, work and children starting school. I can only imagine the struggle it is to have medication, therapy and dr. visits as well. I praise God that Nolan is continuing to improve. I will pray for peace in the changes that are being made and that the routine quickly becomes second nature. I thank God that He is there supporting you through this time and using others in your life to show you that. He is in control...and wants you to trust in that and rely on Him. As I have read in your past entries...you already know that...I just feel lead to remind myself. At church this last Sunday, our pastor spoke of God's plan. God has a plan. He has made each of us to help fulfill His plan. He didn't make Nolan and then say 'now what am I going to do with him?' He has a plan and He has made Nolan to help fulfill His plan. His plan is perfect. Thank you for sharing your faith and trust in God with others through this site. I am sure you have showed others Christs love through this journey. God Bless! Tiffany Eden Twin Falls, ID USA - Thursday, August 28, 2003 2:36 AM CDT Nancy you have great family support. wWen I read your entries I just want to reach out to my family too.Think on these things Happy moments, praise God Difficult moments, seek God Quiet Moments,worship God Painful moments,trust God Every moment, thank God. Stay blessed Hannah Ndika, a friend of Nolan's grandmother in Austin, Tx Hannah Ndika RoundRock, tx U.S.A - Wednesday, August 27, 2003 3:16 PM CDT Just wanted to let you know we sure miss you around here. I kid you not...Madi still asks about Nolan every day. Now she can even say 'Colorado.' Hope things continue to go well for all of you. Looks like we may be heading home (CA) with Madi as early as next Wed. (9/3). We just found out yesterday that she is 100% donor cells again!!! Hugs to all of you. Mike, Marian, Mikey and Madi The Mitchem's <www.caringbridge.org/nc/princessmadison> Durham/Lake Elsinore, NC/CA - Tuesday, August 26, 2003 1:38 PM CDT Good Morning!! Just a little note to let ya know that I am thinking about you all. Take care and I hope things are well there. God Bless and all my prayers always Stephanie Conner Cana, Va - Tuesday, August 26, 2003 10:49 AM CDT Thinking of you...You all are in our thoughts and prayers... In Love & Prayer...Eleasha & Cody <www.forcody.org> - Sunday, August 24, 2003 2:00 AM CDT I'm so happy to read that you are home! I'm sure that Ana will be great to have around... it'll be good to have an extra set of hands to help out. I'm sure GOD led her to you for a reason answered your prayers like you said. I'm sure HE'S doing a great job watching over Nolan! I hope everything works out for all of you. Love and Hugs to you all! In HIM... Katie <stones_throw_girlie@excite.com> IN - Saturday, August 23, 2003 8:08 PM CDT Good Morning!! I'm so excited to hear that you are home -- and what wonderful news that you will have a nanny to help out! God is so good and so faithful. I've been praying for you and Nolan and family and know that God will continue to hold you and take care of you now that you're home. Nancy, don't try to do everything around the house. I'm reminded so often as I hurry to clean and cook and all the things we have to do, that our children are are our priority! That other stuff will just have to wait! You sound so excited to be home and I think it's so wonderful that your sister-in-law is coming. How wonderful to have family around. Hope Kenzie and Cooper have a great school year! Have a wonderful day today . . I'm thinking of you! Love, Cindy Cindy Scobee <cdscobee @msn.com> Scotch Plains, NJ USA - Saturday, August 23, 2003 8:56 AM CDT Hi Sam and Nancy, Your family and especially Nolan have been in our prayers since we received your letter in March. I've been reading your journal entries this afternoon. You are truly amazing and wonderful people. God chose you well for a special purpose! I'm so glad to hear that you are finally home. It sounds like you still have lots of challenges ahead of you, but you have such faith and positive attitudes that I'm sure you will make everything work. We will continue to keep you in our thoughts and prayers. Joffre and Susan Mishall <susan.mishall@eds.com> Cary, IL USA - Friday, August 22, 2003 2:46 PM CDT I'm so glad you guys are getting use to being home. It's wonderful that you have such a great support system there. Jordan cries all through physical therapy too, so don't feel bad. He loves Beverly, and both ladies miss Nolan! We are so happy that Nolan is doing well and pray that he continues on this good path! Love, Carrie, Patrick, & Jordan Horton Carrie Horton <iteach2u@hotmail.com> - Thursday, August 21, 2003 9:49 PM CDT Praise the Lord you are home. We hope to follow in your footsteps soon. We may be delayed. Jack has caught parainfluenza and has developed a rash on his skin that is a yeast infection. Dr. K thinks things will be o.k. but of course we are freaked out. We will continue to pray for Nolan and your famiy. I am sure this is a huge transition time. Pleae pray that God will wipe out these infections that have invaded Jack's body David Shuler - Thursday, August 21, 2003 7:46 AM CDT Hello to you all. Nancy, thanks for the thorough and fascinating update! So glad you are all under one roof again. God is still working in your lives! Happy to learn you'll be having a nanny. What a blessing and much needed help! Hang in there... the light at the end of the tunnel is getting brighter for you each day! Never stop praising and trusting God! As for Nana, she is being covered with prayers. God will be good to her! Love all of you, Winona Foley Garland, TX - Wednesday, August 20, 2003 9:27 AM CDT Hi Colorado Ramsey family!!!! So wonderful to hear that you all are doing well and slowly but surely getting adjusted to being home again! I think it's wonderful you will have a nanny to help you out, and I think it was smart of you to assess that need and fix it before you became too exhausted and too overwhelmed and were desperate. Again, we are so thrilled that all five of you are home together and we will continue to pray for all of you and that your little cutie discovers another color of food to like!!! Love, April April Kreger <kreger90@houston.rr.com> Katy, TX USA - Wednesday, August 20, 2003 8:27 AM CDT Nancy I cannot believe I have been home for a month today!! Things are finally starting to settle down. I have gotten into somewhat of a regular routine. Have 2 appts. in Iowa City this week. But only have to go to regular clinic everyother Friday. My father has Fridays off so he drives while I do my thing with Jeremiah and his feeds in the back seat. He has been vomiting quite abit again in the last week, but I think it has to do with all the therapy he is getting, we are wearing him out. We see the GI doctor tomorrow so hope he can help us out, but I still think it is probably a strength issue. Mike is still working 3 nights a week so am by myself alot, my sister and kids stop by every so often but doesn't feel that much different than Duke. Sunday night through Friday at 5:00 I am stuck at home. Thank God for the break over the weekend. Hope Nolan can get his therapy soon. Miss you all so much. Bye for now. Peggy & Jeremiah <caringbridge.org/ia/jeremiah> Davenport, IA USA - Wednesday, August 20, 2003 8:26 AM CDT Aloha Ramsey family, It seems like you have been home so much longer...it seems like forever since we have seen you. Well, we are glad to hear that you are transitioning okay, and will soon be surrounded with a lot of extra hands to help. We are a bit worried as we won't have any extra help living out on that rock in the middle of the Pacific...but God provides for us everytime, and we will survive!! We continue to keep you all in our prayers. God bless, Debbie, Greg and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> honolulu, hi usa - Tuesday, August 19, 2003 11:00 PM CDT Hi Ramsey's! Bella went through an orange food stage. Cheese, oranges, goldfish crackers, actually any kind of cheese flavored cracker! She got over it eventually once she discovered bologna! Then it seemed to become a red food thing, spagetti, tomato soup! Ha! Transplant life is different isn't it! Anyway, glad you are home- what a long road it has been for you all! Enjoy! And know I will always say my daily prayer for Nolan! Cathy Peters <www.caringbridge.org/canada/isobel> St.Albert, AB Canada - Tuesday, August 19, 2003 5:37 PM CDT To the Nolan Family, Sending you prayers, prayers, prayers! Prayers for your darling Nolan to continue to do well so he can enjoy every minute of being home, that Nanny Ana Carla fits comfortably into your lives and that she can help ease the day to day stresses, that Cooper and Mackenzie love school, and, most important; that 'cooties' never cross your welcome mat! Praying for Nolan's complete healing, Love, Tammy A. Las Vegas, NV USA, God Bless America! - Tuesday, August 19, 2003 2:20 AM CDT I am glad you are back home and getting back to "normal". I hope things continue to go well for Nolan as he recovers and he comes through flu season with little difficulty. Your family will continue to be in my prayers. Stephanie( angel Bella's cousin ) wpg, mb, canada - Monday, August 18, 2003 10:43 PM CDT I am so glad to read that you are all getting settled back in and adjusting to life at your real home. Nolan looked wonderful the day before her left to go home. He had a tough battle with transplant and he deserves nothing but the best after the fight that he gave. I pray that things continue to go well for you all. Enjoy being home and being together again! Come visit us when you come back to Duke! Amy Gunn, RN Duke, 5200, - Monday, August 18, 2003 8:35 PM CDT Hello to the Ramsey Family! So glad and thankful that all of you are under one roof again. God has been so good and you have all been so good to praise and thank Him for everything! Many lives have been touched by your experience and it will continue to be that way. Adjustments are necessary, but you guys will overcome every one of them! Take care and continue to give thanks and praise to God. Love you all in Christ, Winona Foley Garland, TX - Monday, August 18, 2003 7:42 AM CDT What GREAT NEWS, to hear that you are all finally home!!! Congratulations!!! We trekked out to CO earlier this summer, but knowing that you were all still at Duke, we didn't call. We were thinking of you and praying for you though. Praise to God for answering so many prayers for your family! God Bless You All!!! Steve & Nancy Clements, Tyler, Cameron, Kelsey & Brennan <chase@coactive.net> Union, KY USA - Saturday, August 16, 2003 11:08 PM CDT Aloha Ramsey family, So glad to hear that everyone made it safely home and adjusting well. We continue to keep you all in our prayers and for Nolan's continued healing. God bless, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Saturday, August 16, 2003 8:58 PM CDT YEAAAAAAAAAAAAA!!!!!!! Nancy and Nolie made it back HOME! YEAAAAAAAAAAAAA!!!!!!! Enjoy! Enjoy! Enjoy! With love, Miss Judy <taejme@aol.com> Naples, FL - Saturday, August 16, 2003 7:06 PM CDT Miss you guys so much, but we're really excited that you are back HOME!!! Hope we're not too far behind and that we get to take Madi HOME soon. (Dr. K says maybe the end of August or first week of Sept. if she continues to do well.) Madi sure misses Nolan! She asks to see him every day and just doesn't understand what I mean when I tell her that he's in Colorado and it's too far away. It just broke my heart when she started crying after you guys got out of the car at the airport. I couldn't figure out why she was crying and she finally said, "I miss Nolan." We will definitely have to get together some time when our lives get back to 'normal', whatever that is. You'll always have a place to stay if you guys ever make it down to So. Cal. Love you all and hope to keep reading great updates about Nolan's progress. Mike, Marian, Mikey and Madi P.S. Mikey says to tell Cooper and Kenzie HI! Mitchem Family <caringbridge.org/nc/princessmadison> Durham/Lake Elsinore, NC/CA - Saturday, August 16, 2003 5:39 PM CDT Congratulations! So glad to hear you are home. Best wishes from Mighty Max and Family. Margaret Ciacciarelli <www.Mighty-Max.com> - Saturday, August 16, 2003 4:43 PM CDT I'm glad to here that everyone made it home!! Congratulations!!! I'll continue to pray, now that there will be adjusting to a new schedule, environment, etc. Praise God for what He has done in your life so far and praises for what He has planned! Thank you for being such an inspiration. Much Love, Tiffany Eden <cmctiffanyeden@yahoo.com> Twin Falls, ID USA - Saturday, August 16, 2003 1:06 AM CDT So glad to see you are home sweet Nolan! You are always in our thoughts & prayers  Angel Chris and all your friends at ~ Smile Quilts ~ chrisrusso_@hotmail.com - Friday, August 15, 2003 10:52 PM CDT Good news!! Congratulations! We will continue our prayers!!! Cathy Peters <www.caringbridge.org/canada/isobel> - Friday, August 15, 2003 8:57 PM CDT Hey guys! I am so glad that everyone and everything made it home safely. Hope everything continues to go really well for all of you. Have tons of fun being home and with each other!! Jen Edmisten (5200) Durham, NC - Friday, August 15, 2003 2:30 PM CDT Nancy, I am so glad that you and Nolan got home safe. I know that you are glad to be back in your own home. We will keep you on our church prayer list for a while longer as you all adjust to CO. God bless. Marge Markley, FBC, Durham Durham, NC - Friday, August 15, 2003 1:58 PM CDT Welcome Home Nolan and Family! Glad you are doing so well. Tell your Dad that we loved what he wrote in Jillian's guestbook. You are all forever in our prayers. Laura ,Ken, Nathan & Angel Jillian <http://caringbridge.org/fl/jillian/> - Friday, August 15, 2003 10:46 AM CDT Yeah Nolan....I am so glad you made it home. Home is truly where the heart is. I remember when we left Duke how scared I was. After we got home everything just seemed to fall right back in line. I am so proud of you and your Mom and Dad. I am going to miss seeing you in clinic. I don't think there was ever a day you were not smiling from ear to ear. There were a lot of days when seeing you just made things better. :) Hang in there little friend. We will keep you in our thoughts and prayers. LOTS OF LOVE, Traci & Cody Sharp Traci Sharp <SharpT24@wmconnect.com> Salisbury, NC USA - Friday, August 15, 2003 10:03 AM CDT Home Sweet Home! Your entire family back together under one roof, that's the way it should be. Sending prayers today and always. Much love from Denver "North Carolina" Pam <lakenormanheat@yahoo.com> Denver, nc usa - Friday, August 15, 2003 8:20 AM CDT Hey Chick So glad to hear you made it home. Hope the flight was ok. If you are anything like me(which I know you are) it is going to take awhile to sink in that you are home, and even though you are home it still feels weird. I am starting to adjust but the whole being tied to the house so much stinks. The only thing good is that at least my family can come and see me. Going out to get the mail is my only escape to the outside world right now. Thank God for the therapist to talk to daily. I can't wait for the immune system thing to not be an issue. Next year at this time will be better. Saw Nolan's pictures on the website. He cracks me up. I am still having Nancy withdrawals and miss you terribly. Love to you all!! Peggy & Jeremiah <pegakamogan2@aol.com> Davenport, IA USA - Friday, August 15, 2003 7:29 AM CDT Ramsey Family, Isn't God great! So glad that you are all together again in your home in Colorado. You all have blessed our hearts with your strength and the witness that you have been. We continue to lift you up in our prayers. Barbara & Ken Marecle Garland, - Friday, August 15, 2003 6:31 AM CDT Praise the Lord for a SHORT and safe trip home! It's such a joy to think of how well Nolan is doing. It always gives me so much encouragement for the other kids! Go, Nolie! And most of all, thank You, dearest Lord! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Thursday, August 14, 2003 11:43 PM CDT YEA!!!!!!! and Amen! Love, Kyndal Kyndal Bass Frisco, Tx - Thursday, August 14, 2003 9:47 PM CDT Yeah, I am so glad you guys made it home safely! I'm sure you are enjoying it even though it is a little nerve racking. Jordan is now seeing Nolan's Physical Therapist. Barbara is wonderful, and she misses Nolan. I pray that Nolan's congestion clears and all is smooth sailing from here on out! Love, Carrie, Patrick, & Jordan Carrie Horton <iteach2u@hotmail.com> - Thursday, August 14, 2003 8:09 PM CDT Hello from Aldersagte United Methodist Church in Abilene, Texas. Little Nolan Ryan has been on our prayer concerns list since March. We are THRILLED to learn he and the family have gone home to Colorado! We wil continues our prayers as he continues his recovery! May God Bless You All! AUMC Staff & Congregation Sandy Dlugas, Director of Music Ministries <music@aldersgateabilene.org> Abilene, TX USA - Thursday, August 14, 2003 10:46 AM CDT Welcome back! Thankful that all of you had a safe trip and good visit to Children's (We were there Tues. for Nicole's checkup...great place and fantastic Dr.'s!!) Praise God for Nolan's continued health and for the blessings on your family. See you soon! Love Vera Vera Stephenson <vera@reverenceacademyofdance.com> Louisville, CO US - Thursday, August 14, 2003 8:40 AM CDT I'm so happy y'all finally made it home. Congratulations!! And keep up the good work Nolan. Kim Barron <kbarron@ibsa.com> Rowlett, TX USA - Thursday, August 14, 2003 8:26 AM CDT CONGRATS ON BEING HOME!!!!!!!! YIPEEE!!! I am so glad to hear that all is well and running smoothly. I will be praying for you all during this time of chaos and excitement and also for continued progress with Nolan. Keep up the great work Nolan~ Sarah Thomas <sarahthomas@financial.wellsfargo.com> Urbandale, IA - Thursday, August 14, 2003 8:21 AM CDT I am so glad things are going well and that Chelle is there to be a right hand woman! Thank you Chelle for posting for Nancy, I was anxiously waiting to here everyone was home and getting settled! Nancy - when you update next let us know how Boo liked Kindergarten! :) Tammy Rajabi Katy, TX - Thursday, August 14, 2003 7:49 AM CDT I CHECK NOLAN'S SIGHT REGULARLY, BUT DO NOT USUALLY SIGN. JUST WANTED TO PASS ALONG OUR CONGRADULATIONS TO ALL OF YOU ON YOUR RETURN TO HOME. WE WILL KEEP YOU IN ARE PRAYERS AS YOU GET ADJUSTED TO BEING HOME AGAIN. MAY GOD CONTINUE TO BLESS ALL OF YOU JEFF AND STEPHANIE BECK <JBECK@KDHOSIERY.COM> MT AIRY, NC - Thursday, August 14, 2003 7:47 AM CDT Hey Nolan!! Congrats buddy!! You made it home!! I will continue to pray for you and your whole family. Best of luck to you and keep up the good work Nolan!! Stephanie Conner Cana, Va - Thursday, August 14, 2003 5:36 AM CDT HI, Nolan, I am Max's G-Pa J. Glad things worked out for you. Max's G-Pa J. Burbank, Il USA - Wednesday, August 13, 2003 1:33 PM CDT Hello, Ramsey family! Hope all went well on your trip home and that you are settling in. Can't wait to read an update when you have the time. The Redhairs Carla Houston, TX - Tuesday, August 12, 2003 10:21 PM CDT Nolan, I like your new glasses. Hope you are feeling well. I am not liking ATG, but I am looking forward to my transplant on Thursday! Mighty Max Ciacciarelli <www.Mighty-Max.com> - Tuesday, August 12, 2003 3:09 PM CDT Hey there. I haven't signed in for quite a while, but there's no way I can ever forget any of the Duke families and I remember you in my thoughts and prayers continually. Congratulations on your trip home. I will continue to think of you and pray for you throughout this transition. Praise God for bringing you this far. Lots of love to you guys. Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC, - Monday, August 11, 2003 3:02 PM CDT Hello. Home sweet home. So happy for you! God bless. McKenzie's Aunt Darlene OH - Monday, August 11, 2003 2:20 PM CDT Good morning all, Just dropped by to say hello. So, how wonderful does it feel to all wake up in your home? I imagine it is great! Nancy, we enjoyed talking to you yesterday and your sounded just great! See, clicking your heels really did finally work! God as been very good to us all and we are so thankful! We will see you on Thursday and can hardly wait. Cooper and Mackenzie, give Nolan hugs and kisses from Grammy and Grandpa. Then give yourself hugs and kisses from us also. Just remember how very much we love all of you and we miss you. Cooper are you ready to go fishing? See you soon! God bless you all. We love you. Grammmy and Grandpa Ron and Edith Heilhecker Abilene, TX USA - Monday, August 11, 2003 10:31 AM CDT Well you guys should be getting home soon, if not already there! How exciting!!! We are so very happy for you guys and hope that you get settled in. We will continue to check in on Nolan and keep you all in our prayers. God bless, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Sunday, August 10, 2003 8:57 PM CDT You should be getting home about now!! Welcome home! I guess your heel clicking finally worked! There's no place like home, there's no place like home, oh Aunty Em, there's NO place like home!!!!! :) Tammy Rajabi - Sunday, August 10, 2003 8:17 PM CDT Hi Nancy! Wow--to think you'll be arriving back home tonight and will get to sleep in your own bed, have breakfast in your own kitchen and hang out with your family in the morning--how perfect is that?! As your sister-in-law said--I too would love to be part of your welcoming home party, but it looks like you'll be arriving a little late! I hope to see you sometime this week after you've settled in a bit and aren't so overwhelmed. God has been so good to you all--His greatness and goodness are astounding. My faith has increased as I've seen him work so many miracles in Nolan's young life. Please, please, give me a call if I can do anything to help in any way. I know you have great neighbors, and relatives on the way, but I would love to watch your other kids when Nolan has an appt., or even watch Nolan if you have back-to-school shopping, meetings, registration, etc. Just let me know! Your house or mine! I agree that Nolan looks adorable in his little glasses. Ashlyn had no trouble recognizing him in his picture--it was you she was unsure of (I think it was that your hair was pulled up!). If Mackenzie is going to do dance again, we should try to get them in the same class. You may be cutting down on the extracurricular activities with all you have to do with Nolan. Ashlyn will be in p.m. kindergarten--what about Mackenzie? Well, I'm looking forward to seeing you all and I am praying that you all will make it safely home and Nolan's flight will go smoothly. May God send wonderful people to help you on the plane and may Nolan sleep some and not get too fidgety! Love, Linda Linda Bostic <linmah4now@aol.com> Erie, CO - Sunday, August 10, 2003 7:41 PM CDT Hope that everyone arrived home safely! Thinking of you all as you arrive home to be all together in your own home! I don't know if I have ever signed in but have followed your journey and just wanted to say how happy I am that you get to go home! Kathy <kmayo42@aol.com> Whitehall, OH - Sunday, August 10, 2003 3:39 PM CDT Go, Nolan!!!! Home again, home again, jiggety jig! We are so very pleased for you and your family for enduring what you have over the past 125+ days... Best wishes for a smooth transition back to your old neighborhood and your happy HOME. You are such a blessing. Kudos and big hugs to your mom and dad, too! With love, The Birminghams <www.missmollyb.com> - Sunday, August 10, 2003 8:49 AM CDT Just a quick hello and a hope for a safe trip home. God Bless and hope to hear from you all soon!!! My prayers are with you. Stephanie Conner Cana, Va - Sunday, August 10, 2003 8:08 AM CDT Nolan, you little cutie! I am so very,very excited about your going home to Colorado! The Lord has been so blessed to have you and your family part of his Army of Believers at Duke - but I know He is laughing with joy at your release to go home! You have such great parents to guide you through life, and I pray that the Lord will keep you safe from germs when you get home. "Rejoice in the Lord always, and again I say, Rejoice!" Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Sunday, August 10, 2003 0:20 AM CDT Nolan, you are JUST TOO CUTE with your little glasses. You look great in that nice green shirt--it is your color. PRAISES be to God our King for healing you so you could go home all the way to Colorado. Prayer has the wonderful capacity to highlight our emptiness and God's fullness at the same time. It is wonderfully suited to express our inadequacy and God's all-sufficiency. I am so glad to be your email friend. The bricks of friendship are made of laughter, but the mortar is made of tears. I thank You Heavenly Father for this family. Please bless them on their trip HOME. Nolan, you count and see if I am #100,000 okay? Thanks sweety. Love in Christ Jerrri and Kaden <pakrfan1@msn.com> Sioux Falls, SD USA - Saturday, August 9, 2003 8:03 PM CDT Nolan, you are JUST TOO CUTE with your little glasses. You look great in that nice green shirt--it is your color. PRAISES be to God our King for healing you so you could go home all the way to Colorado. Prayer has the wonderful capacity to highlight our emptiness and God's fullness at the same time. It is wonderfully suited to express our inadequacy and God's all-sufficiency. I am so glad to be your email friend. The bricks of friendship are made of laughter, but the mortar is made of tears. I thank You Heavenly Father for this family. Please bless them on their trip HOME. Nolan, you count and see if I am #100,000 okay? Thanks sweety. Love in Christ Jerrri and Kaden <pakrfan1@msn.com> Sioux Falls, SD USA - Saturday, August 9, 2003 8:02 PM CDT Praying for a safe trip HOME for you guys. That truly has a wonderful ring to it, doesn't it?! Sending hugs and prayers. May God continue to heal and bless you ALL. Martha White <MWhite6@charter.net> Princeton, WV - Saturday, August 9, 2003 7:53 PM CDT Congratulations on being set free and going home!! I know the feeling cuz Jeremiah is home now too and progressing every day. Beautiful Colorado awaits you! Travel safely. Jeremiah's Aunt Ginny <gdibbern@aol.com> Denver, CO - Saturday, August 9, 2003 4:20 PM CDT YEAH!!! Your going home!!! Blessings to you. I am excited to hear that you are heading home. I look forward to hear how the transition goes. God Bless! Tiffany Eden <cmctiffanyeden@yahoo.com> Twin Falls, ID USA - Saturday, August 9, 2003 1:35 PM CDT Ramsey's so happy for you guys. Gods blessings for your trip home. Have a safe one. Sheila Taylorville, il - Saturday, August 9, 2003 1:03 PM CDT CONGRATS!!!!!! I am so so happy that you will be returning home as planned. I know that you and your family are way more exicted than I am. I pray so hard for your safe return to Colorado and that once home everything will go on like clockwork. I know that God has kept a close eye on Nolan and he will continue to. I will continue to say my prayers that Nolan continues his progression for the best. By the way, he is sooooooo precious in his little specs. They are adorable. We hope to hear an update soon and have a safe and wonderful trip back home. God Bless you all and my prayers always Stephanie Conner Cana, Va - Saturday, August 9, 2003 11:06 AM CDT I am so glad you are getting to go home. I am glad Nolan is able to go . You are in my prayers every day. Flo Dickens <floaston@up-link.net> Benton, Ar USA - Saturday, August 9, 2003 11:03 AM CDT I'm finally back online after moving in time for your last journal entry! Looking forward to seeing you all again and praying for yours and Sam's safe and uneventful trips. Love you... Kay Wilkie - Saturday, August 9, 2003 9:06 AM CDT Yea Nolan and family!!! I am so excited for you!!! Have a safe trip home and may God bless you! KEEP THE FAITH!!!! :) Nurse Megan, 5200 Durham, NC USA - Saturday, August 9, 2003 4:41 AM CDT Thank God the surgery went well. As He has surrounded your family while there, May He continue to surround you with His Love, Healing, and Protection. Safe Trip Home. Darla <D6318_@hotmail.com> Illinois - Saturday, August 9, 2003 1:39 AM CDT Thank youso much for the extra prayers and words of support and encouragment...it really means so much to have so many people praying...loving...and supporting us...you guys are so great...I am sad that we will not have the chance to see you upon our return to Duke...but I am also so excited that you get to go home...HOORAY NOLAN! In Love & Prayer...Eleasha & Cody <www.forcody.org> - Friday, August 8, 2003 10:57 PM CDT Praise God the surgery went well. I will be praying that everything goes well in the next few days and you arrive home safely. Can't wait for the next entry. Stephanie Boille ( Isobel's cousin ) Winnipeg, MB, Canada, - Friday, August 8, 2003 7:26 PM CDT Hope your trip home was good......it will be fun to hear how Nolan reacts to his new surroudings of home! God Bless your family Elisabeth - Friday, August 8, 2003 4:11 PM CDT Aloha, We are so happy that your going home day is getting so very close. We will certainly be checking up on you guys, and keep you all in our prayers. God bless, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Friday, August 8, 2003 2:39 PM CDT Just had to add to the total, trying to reach 100,000! And, just had to add our congrats on your home-going. What a journey!! Our prayers will be with you for an uneventful trip!! Carla Redhair Houston, TX - Friday, August 8, 2003 2:36 PM CDT So glad to hear you are headed home. I will keep praying for Nolan that all goes well. Cathy Rusyniak <Garbmike@optonline.net> Rockaway, nj - Friday, August 8, 2003 2:33 PM CDT May your trip home be uneventful. God Bless! BPL & Family Cleveland, OH USA - Friday, August 8, 2003 1:07 PM CDT Congratulations on going home! I hope the trip goes smoothly! We will miss you guys! Love, Carrie Carrie, Patrick, & Jordan Horton <iteach2u@hotmail.com> - Friday, August 8, 2003 1:05 PM CDT WAHOOO! HOME...doesn't that have a sweet sound! We can't wait to have y'all back! Makes ya want to SING!! Nolan, those glasses are too cool!! You look so grown-up! Vicki Nave <QtyNave@aol.com> Broomfield, CO USA - Friday, August 8, 2003 12:59 AM CDT Dear Family, Can you believe it?! HOME! You're almost there! The excitement is just too much! I'm so happy that Nolan is continuing to do well. Each of you will be in our thoughts and prayers as you make the long journey home. Wish we could arrange a BIG welcome wagon to greet you... balloons, a band, maybe FOX or CNN at the airport?? ... okay, okay...."less is more"...I get it, I get it! For now I'll just have to settle with telling you how much I love you. How happy I am that you are finally going home. How thankful I am that God has carried you this far. We will continue to lift you in prayer. On this side of the world the Strayer Relocation Plan has officially been launched! WoooHooo!! We've got a few weeks to get everything packed up and ready to go - then we will be headed your way! I was a little under the weather the first part of the week but I'm back and in full swing- ready to pack this weekend! ;-) Love and (((HUGS))) across the miles. Have a safe trip and we will talk soon. Aunt Chelle The Colony, TX USA - Friday, August 8, 2003 12:27 AM CDT Got to help you reach 100,000...Congratulations on going home. I'm reallying rooting for your beautiful family. Danielle Saugus, CA USA - Friday, August 8, 2003 11:47 AM CDT Congratulations! You are going home!!!! Yea!!!! Here's to the start of a new, healthy life! Susan Wensel - Friday, August 8, 2003 11:33 AM CDT Great to hear the news that you are going home. I only wish that we could be there to greet you. It's wonderful to see Nolan's progress and how your family (along with many friends) have grown throughout this ordeal. Thanks for the inspiration! Hope to see you sometime soon. Kim, Mark, Dustin and Brandon San Diego, CA - Friday, August 8, 2003 10:58 AM CDT Well this entry will bring you one closer to the 100,000 mark but even more of a victory is Nolan going home!!!!!!!!!!! I am so excited for you all. It's going to take time to get everything set up at home but you won't mind one bit. I will keep praying that things will continue to go so well so Nolan. I guess Aaron isn't the only poster child for a healthy transplant. XOXO Trisha Athy - Friday, August 8, 2003 10:21 AM CDT Well this entry will bring you one closer to the 100,000 mark but even more of a victory is Nolan going home!!!!!!!!!!! I am so excited for you all. It's going to take time to get everything set up at home but you won't mind one bit. I will keep praying that things will continue to go so well so Nolan. I guess Aaron isn't the only poster child for a healthy transplant. XOXO Trisha Athy - Friday, August 8, 2003 10:21 AM CDT Well this entry will bring you one closer to the 100,000 mark but even more of a victory is Nolan going home!!!!!!!!!!! I am so excited for you all. It's going to take time to get everything set up at home but you won't mind one bit. I will keep praying that things will continue to go so well so Nolan. I guess Aaron isn't the only poster child for a healthy transplant. XOXO Trisha Athy - Friday, August 8, 2003 10:21 AM CDT Happy trails to you!!!! So Nancy, do you get a pay increase with this new job? ;) You really do amaze me! I am so happy for your family! What an exciting weekend, savor it! Tammy Rajabi Katy, TX - Friday, August 8, 2003 9:29 AM CDT Yahoo!!!! I am so happy to hear that you are on your way "home sweet home" I hope Nolan will continue to do just great at home. I know he will. Can't wait to see that picture. Love, Anne Anne Himes <www.caringbridge.org/page/andrewh> Boonsboro, md USA - Friday, August 8, 2003 8:13 AM CDT Congratulations on getting to go HOME! May God grant you a safe and healthy trip. May He also be with you at home and grant a continued healing for Nolan. Nancy & Ed Aman <nancyaman@charter.net> Sanford, NC - Friday, August 8, 2003 7:53 AM CDT Dear Nolan and family, I am wishing you a safe trip and I am praying for you daily.All of you have been an inspiration to the Mighty-Max family!!Please continue to keep us updated. Love,Judie Sweeney,Max's Granny. Judie Sweeney Chicago, IL USA - Friday, August 8, 2003 7:43 AM CDT Hey Chick and all your little chicklets Wow only a single lumen. What a great thing!!! one less thing. Have a good trip home and don't forget to click your heels. Because there is no place like home. Love to you all!! Peggy & Jeremiah <caringbridge.org/ia/jeremiah> Davenport, IA USA - Friday, August 8, 2003 7:42 AM CDT It was so wonderful to read some of the recent journal entries, and to see how God is working in amazing ways. It was also wonderful to see your heart for the many babies and families you encountered in North Carolina - there is always someone or something we can pray about! Welcome Home! The Gaskins <lisa.gaskins@juno.com> Erie, CO USA - Friday, August 8, 2003 1:28 AM CDT Glad the surgery went well. Have a safe trip HOME!!! Gee, I'm so psyched for you!!!! Love, Lisa Post <ltjpost@cox.net> - Thursday, August 7, 2003 11:11 PM CDT Way to go Nolan!!!!! Cathy Peters <www.caringbridge.org/canada/isobel> - Thursday, August 7, 2003 11:00 PM CDT Hi Nancy....just wanted to say CONGRATS! on this very exciting few days....I'm sure you will be holding your breath until you are home in Colorado, but we'll praying for you this entire weekend as you finally get to take your journey home with Nolan and be together as a family - wow!! We are so happy for the five of you and can't wait to hear how it all went after you get home and get settled!!! Love, April April Kreger <Kreger90@houston.rr.com> Katy, TX USA - Thursday, August 7, 2003 10:29 PM CDT Hello, I am a Quilting Angel from Quilts Of Love. We would be honored if you would stop by our site when you have a moment to spare and see the beautiful online quilts we make for children. If you wish we would love to make your child a quilt of love for their very own. Warm hugs, Island Princess  Island Princess <islandprincess@quiltsoflove.com> - Thursday, August 7, 2003 7:03 PM CDT Hi, Nancy! If you have not heard, I'm having my house redone after the pier work. I'm staying with my daughter & coming & going to check on things. Just had to check on Nolan while I am here at the house! Nancy, if it's any consolation... when my husband was electrocuted and lost a hand & the use of the other one, we were being transferred to the TIRR in Houston for rehab. I worried myself sick on how I was going to handle things in the airports and on the plane! He was in a wheel chair and so much carry on luggage! What to do if bathroom was needed, etc. To make a long story short...God took care of everything! Not a mishap of any kind. Remember, He has brought you this far and He will continue taking you home to Colorado. "Where God Leads, He Feeds" is a motto that gave me complete peace after everything that transpired with Bill & I. I realize the situations are so much different, but the concept of God's care is still the same. Take care. Try not to be anxious & worried. God "will feed you all the way home!" Love you all, Winona Foley Garland, TX - Thursday, August 7, 2003 6:56 PM CDT Hey Nancy and Nolie - We are so thrilled you are going to be coming home to Colorado. We look forward to your return. And yes, Nolan looks very "spiffy" in his new glasses! Thanks for sharing the pics. You are always in our thoughts and prayers. Cindy, Jeff, Kai Stahoviak - Thursday, August 7, 2003 4:43 PM CDT Well the good news just keeps coming. Cant wail for you all to be back home. Will be praying for safe travels. Sorry its been so long since Ive written. Between Starlight Crusads and vaca havent been home much. When you get back just let us know what we can do to help. Dont want to bombard you with too much stimulation but will be there for whatever you need. Praise God for all he has done and will continue to do. We love you and thank God for your return. Gary and Kim Milne Louisville, CO USA - Thursday, August 7, 2003 10:31 AM CDT Ramsey's, We will pray for patience and also for a safe trip back home. Hopefully Jordan will follow you in a few weeks. You are in our prayers. Sheila, Jordan's grandma Taylorville, il - Thursday, August 7, 2003 8:01 AM CDT Nancy and Nolan, Hey!! We are all here at work tonight looking at web pages. We saw the new pictures, how cute are they!!!! We want you to know we are thinking of you and missing you! You have come a long way, we are so proud of Nolan. We wish you the best of luck. Please keep in touch!!! Love always, Sameeya, Jennifer W., Bethany, and Jennifer E. <sameeya@hotmail.com> Durham, PBTU, NC - Thursday, August 7, 2003 2:36 AM CDT What wonderful news to read a child with Hurlers receiving a transplant and getting ready to go home....God is good all the time, all the time God is good. Wishing you nothing but beautiful days ahead with your son:) I will continue to follow the site and pray for your family. All the best and God Bless. Robin Tucker - Wednesday, August 6, 2003 12:55 AM CDT Wishes for a smooth trip back HOME!!!!!!!!! so so happy for you that you guys have reached this point.....know there are many more changes awaiting you.....good luck and God Bless... Nolan looks too cute with his glasses. enjoy your own bed and surroundings! Elisabeth - Tuesday, August 5, 2003 7:00 PM CDT Hi Nolan, Just checking in on you and the family to see if there was any new news. Your Aunt Chelle is fighting off a nasty virus today - so I'm in "yucky mode" right now, but wanted you to know I've been thinking about you. Sweet dreams my little one. Sleep well. Home is just a handful of dreams away. Love, Aunt Chelle :o) The Colony, TX USA - Monday, August 4, 2003 9:57 PM CDT Nolan, you orange-fingered Cheeto dude! YOW! Whazzzup, dog?!?! Man, you've got it ALL goin' on, don't you? You've graduated from your Froot-Loop period and are now exploring the artistic possibilities of orange food, hm? Heh - don't think *I* don't know what you're up to! You lie awake at night, I bet, plotting how to get yourself all situated with the Orange Hand of Cheeto and the Knockout Cheese-Nip Breath, waiting for someone in dark pants to come by - then, quick as a wink, you nail 'em with an orange hand-print and a cloud of Toxic Cheese Fumes! Uh-huh, I can see it all, young man - you and your giggling orange-tongued self! Whoo, BABY! S'all right, though - sometimes, an orange hand-print on the fanny is just what some Serious Grown-Up Person needs to remind them to take life a little less seriously. Here's a tip, though - what you REALLY need to go along with your Cheetos and Cheese Nips is some grape jelly. Seriously, man - a nice mixture of sticky grape jelly and glow-in-the-dark orange cheese dust really freaks people out. It's orange, it's purple, it stinks to high heaven of cheese, and it's sticky beyond belief - trust me, man, it's like home-made toxic waste. The only thing you've got to watch out for is that you won't be able to pop a hand-print on someone without sticking to them; you'll be like some kind of orange-and-purple human gecko! Come on HOME, my man! We've got things to DO!! Ol' Weird Philippe Broomfield, CO USA - Monday, August 4, 2003 6:27 PM CDT I am happy that you get to go home! But that's not why I'm writing. I am writing because I almost died when I saw how utterly adorable and handsome Nolan looks in his glasses!!!! I love them!! The best pictures I've ever seen!! Cathy Peters <www.caringbridge.org/canada/isobel> - Monday, August 4, 2003 5:40 PM CDT Our Dear Family, Can hardly believe you are about to go home! Thank God. Can hardly wait to see you. We should be there on the 14th. I will probably not put Nolan down the whole time, but I will have to fight grandpa and give him equal time also. It has been a long hard pull and still more to go, but you have all done a remarkable job. We are so very proud of you! I know how hard it has been, but soon you will be home again! Nancy, you are so right, God has showered us with so many blessings and continues to do so. The greatest of which is Nolan! Another blessing - as you all know Rhonda is now engaged to Daniel as of last night! We are so thrilled. Once again, we are gaining another wonderful kid. We will now have 4 wonderful sons and 4 wonderful daughters! Sam, Michelle, John and Rhonda - you have chosen your mates well, couldn't have done better if we had picked them. We moved Rhonda to Waco this weekend, so it is just grandpa and I now. I believe almost the first time since we have been married! Kinda strange. Really do miss everyone. Nolan, you have to be the most handsome little guy I have ever seen - of course I am not prejudiced at all - you are beautiful! You are God's little miracle for us. You have had such a long journey and been such a brave little guy! God has special plans for you. We will see you soon. I hope you remember grammy and grandpa - if not, you will. Hang in there and keep smiling. Well, before long all our grandbabies will be in Erie, Colorado. That is so far. My we are going to miss them, but what great timing for them to come. God always knows our needs and handles them - another blessing at the right time. Grandpa and I just simply have to get things together and move up there and then get Rhonda and Daniel and John and Amy up there. Sam, I still love your idea about all of us living on a bunch of land up there. Let's start working on that and not let the dream die. We know it is possible. God has answered so many prayers and that can be one more. I did not mean to write a book, but just wanted to say hello and tell you that our hearts are filled with joy. Dad and I know that we are the most blessed people in the world. God has given us a remarkable family. We have the most loving, wonderful and amazing children and grandchildren ever. We all love each other and if one member has a problem, then the whole family has a problem! That is what family is all about. We will never let that change! That is worth more than all the money or things of this world. We are so very proud of our family. God is indeed WONDERFUL! I received an e-mail that says it all: Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God. Better run for now. Take care of each other and know how much you are loved. Cooper and Mackenzie, we MISS YOU!Nana, thanks for being there again. Certainly enjoyed seeing you at John's wedding. Take care. Saw this on a church billboard in Waco and love it: ASAP - Always say a prayer PUSH - Pray until something happens Need to live our lives by that. SEE YOU SOON AND WE LOVE YOU!! Grammy and Grandpa We continue to keep all the other children in our prayers. Ron and Edith Heilhecker Abilene, TX usa - Monday, August 4, 2003 3:07 PM CDT Aloha Nolan and family, We are so very excited for you guys!!! Yea Nolan!!! Despite the 'few' days delay and overstay, you are now so very, very near to going home!!! We wish for you a safe and speedy journey home, and a smooth transition into the clinics back home. We are so proud of you buddy! God's blessings to you all, and we will certainly be checking in on your progress! Peace and Aloha, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Monday, August 4, 2003 2:49 PM CDT Hi Ramseys!!! Thank you for posting the new pics of your previous three kiddos!!! Words cannot describe how absolutely adorable Nolan looks in his glasses - the pics of him made me laugh and cry at the same time - what a bundle of joy!!! I'm so excited about ya'll getting to finally go home this week - what a wonderful blessing - I still cannot wait for your first journal entry from Colorado - just knowing that you guys are back home with Nolan as you continue your journey with him will be so wonderful!!! Have a great week and I hope it goes fast!!! I am always praying for you guys!!!! Love, April April Kreger <kreger90@houston.rr.com> Katy, TX USA - Monday, August 4, 2003 2:38 PM CDT Nolan, how did you know that would make a great birthday present for me on the 10th? You getting to go home. Yay! I love the new pictures, you look precious in your new glasses...I just want to kiss the top of your sweet head! Thinking of you all this week as you pack up and get ready to head to home sweet home! Randy, Robin, Jake & Grace Boger Lewisville, NC - Monday, August 4, 2003 10:57 AM CDT Nancy and Nolen - Yeah! you are about to go home. I am so excited for you. It is great to have a God that answers prayers even though he sometimes says wait a little bit. We will keep praying this week for you to get packed and to have a safe trip home (and that the U-haul is big enough)! Susan Gothard <sgothard@hitachiconsulting.com> Rowlett, TX - Monday, August 4, 2003 9:41 AM CDT Hi Nolan, You are one good looking guy. Any those glasses just are over the top! Glad to hear everything is going well. Take it slow and easy and be prepared for the scene change this weekend. Take care and God bless, Jeanne and "Taylor" Blair <mommyjb@cox.net or caringbridge.org/va/taylor_blair> Va Beach, Va USA - Monday, August 4, 2003 8:01 AM CDT Hey Chick Well you are heading into the final countdown!!! IT WILL GO QUICKER THAN YOU THINK. Then you will get home and it will feel like you really weren't gone that long, and that is where the weird part sets in. Jeremiah is still doing great. We are heading up to Iowa City today for another check up. I hoping to hear that they won't need to see him every week. With the visiting nurses coming they can do the same thing that is done up there. I also have to go to their clinic tomorrow to see the pediatric neurologist there. She is to be Jeremiah's primary doc. Miss you so much. We will talk soon. If I don't touch base this week it will be so great to talk to you at home!!! Peggy & Jeremiah <caringbridge.org/ia/jeremiah> Davenport, IA USA - Monday, August 4, 2003 7:55 AM CDT Nancy Sam & Kids: Steve and I check your site often and our prayers have been with you throughout all of this. I know you will be glad to go home. I know that Orchard Glen will welcome you home with more love and support than you can imagine. The two years we spent there will always hold a special place in our hearts and I know it will be a blessing for you to be home among such precious people. all our love, Steve Salina Grace & Hannah Scorsone Salina Scorsone <sscorsone@hotmail.com> Edmond , OK - Saturday, August 2, 2003 5:45 PM CDT Dear Family, I'm smiling as I read your entry... YES, the Lord has showered us with blessings, hasn't he?! I know there's lots of road ahead left to travel, but let's slow down and take the "scenic route" because the Lord's in the drivers seat and I'm learning to relax and enjoy the ride! :o) I'm so glad to hear our little Nolie is feeling better. You hang tight buddy - you'll be on your way home before you can blink an eye! I know that going home will be wonderful, yet bring with it a whole other set of changes for the family. No worries - your friends AND family (smile...!) will be right there with you every step of the way! YEAHHH!! We sold our home!!! We are so excited, but our heads are spinning with all the things we've got to do in the next several weeks! Isn't it a blessing how the timing on everything is working out? The only recent interest we had in our home was a couple that had yet to sell their home. So even if they made an offer it could be months before we were even close to closing on ours. Then out of the blue, last Wed. night our realtor called and said there was an offer made. He said the couple has already sold their home and wants to close no later than the first week of September.... WOW! I'm sure nobody heard me, but I whispered a thank you straight up to Heaven that very moment! Get ready the Strayers will soon be on their way! ... uh oh... there goes the neighborhood! ;-) Well Nance - your right - there's lots more blessings heading our way (wink! wink!). And the journey continues on.... smile. I love you and I'm praying for you. (((HUGS) and kisses! Aunt Chelle The Colony, TX USA - Saturday, August 2, 2003 3:48 PM CDT Love you all! xo Vera Vera Stephenson <vera@reverenceacademyofdance.com> Louisville, CO US - Saturday, August 2, 2003 9:10 AM CDT Hey, Nancy! I don't always sign in, but I check on yall everyday. It's really great how you've opened up your heart and your home to keep us all informed of Nolan's progress. I'm so glad you'll be going home soon! Way to go, Ramseys! Debbie Moss <kdmoss1989@comcast.net> Rowlett, Texas USA - Friday, August 1, 2003 10:32 PM CDT i have been checking nolan's sight regularly. do not usually sign. but want to extend my congrads on getting to go home. i know no one can truly know how great this is for all of you. i will continue to pray that God provides for all of your needs as you return to your home. once again congrads and God bless Jeff Beck <jbeck@kdhosiery.com> Mt Airy, NC - Friday, August 1, 2003 1:45 PM CDT I've been checking on you regularly and haven't left a message in quite some time. I have you in my prayers daily and excited to know you are about to go home. I wanted to help you get over the 100,000 mark! Congrads! Kay Hodges <kay.hodges@dhs.state.tx.us> Odessa, TX - Friday, August 1, 2003 12:44 AM CDT Nancy, don't ever stop singing!!! I know without a doubt you'll never stop praising God for all of His wonderful care for you and your family. Keep hanging in there and Colorado will "welcome" your family home before you know it! Love you all, Winona Foley Garland, TX - Thursday, July 31, 2003 6:51 PM CDT I'm glad to hear your on the way home. God Bless you all. Cindy Cass <cindy.cass@dhs.state.tx.us> Abilene, TX USA - Thursday, July 31, 2003 1:41 PM CDT Hang in there guys! I try to check on Nolan daily. I was hoping we would run into you guys in clinic during our Duke visit, but we must have been in opposite directions. Maybe one day we will get to meet if they put together the "Hurler reunion". I heard a little about this while we were there for transplant, but I haven't heard anything since. Take Care and have a safe trip home! Good Luck Nolan! caringbridge.org/tn/laney Beth Anne Biggs <bigg6550@bellsouth.net> Rogersville, TN - Thursday, July 31, 2003 12:42 AM CDT Hi Nancy, I finally looked at the website. I thoroughly enjoyed reading all the updates. I especially was inspired by the wonderful scripture verses you come up with everyday. It was good to talk to you earlier today. Have a great day! Tell your family Hi! Stacey - Thursday, July 31, 2003 12:30 AM CDT So glad you guys are gonna finally get to go home..sorry for the delay. Praying that you are soon on to the next "chapter" in your lives and that it is a happy chapter. You guys have been through so much, you deserve some happiness Martha White <MWhite6@charter.net> Princeton, WV - Thursday, July 31, 2003 11:17 AM CDT Hi Nancy, It's been too long since I was here and I have no excuse! (Although I have been to Nolan's site just to look at his sweet face, without signing.) I haven't e-mailed you in a while either but I still pray for your family every day. Nolan is beating the odds and that puts a smile on my face! I know you are excited to be going home and Nolan has certainly been through enough ~ he deserves to go home! My prayer for you and your family is to always feel God's gentle touch around you. I am so happy for all of you and you will be in my prayers faithfully. Cameron's Page Love from Alabama, Emily Martin <esmw72@yahoo.com> Anniston, AL USA - Thursday, July 31, 2003 10:52 AM CDT Nancy, I am so glad to hear that things are still going good. I know that had to be disapointing that you will not get to be home on the 8th, but the 11th isn't that much off. I am so so glad that you will be going home. You have all worked long and hard to finally get to go home and sleep in your own bed. My thoughts and prayers are with you always. Keep up the good work Nolan Stephanie Conner Cana, VA - Thursday, July 31, 2003 5:22 AM CDT Hey Guys, Holly is keeping us posted on everything. She has been so good about doing that. I hear the news is great, we are praying for you all; that God's Angels will guide your every move until your back home in Colorado. May the Joy of Jesus be with you always! Love The Wilson's Pam Wilson <pam@able-huber.com> Katy, Tx - Wednesday, July 30, 2003 7:20 PM CDT Wow-you miss a few days and look at what goes on-you guys are better then Guiding Light!!! Praise God you are going home!!! I know, I know it's not when you wanted or planned, but let's not over look the BIG picture-COLORADO HERE YOU COME!!! I know you will feel better having North Carolina in your rear view mirror-but God has brought you this far don't lose sight of that vision and know this is the best for Nolan!!!! I'm so excited for you Nancy!!!! Nolan, way to go big guy!!! You are my hero!! I just love the cheeto thing!!! I cannot quit smiling!!! I will continue to pray for all the details to go smoothly and for no other hiccups to get in the way. I know you can see the mountain peaks and they are closing in!!! You know if I were there there would be streamers from every direction welcoming you home!!!! I love ya'll and are rejoicing with you. Thank you Jesus for sustaining us and giving us a hope!!! I'll pass on the joy!!! Holly Strickland <hoddyg@ev1.net> Katy, tx - Wednesday, July 30, 2003 5:12 PM CDT Sorry about the delay...it'll go by fast! Best part is, Nolan is doing great and you are right, that is the most important part! Love, Lisa Post <ltjpost@cox.net> - Wednesday, July 30, 2003 10:53 AM CDT Good morning family :o) I could "hear" the disappointment in your entry, but your right Nancy - it just wasn't in the plan for you to head home early. I remember when you were devastated about moving from Dallas to Houston - it was that move that God lead you to "your Holly" … I remember how hard it was for you to leave your friends and your church in Houston and relocate to Colorado - it was that move that God brought you to the doctor that would help to diagnose Nolan's illness and introduced you to a whole other network of wonderful friends and church family. You are ALWAYS where you need to be - when you need to be there -- God never sleeps. He's working His plan every single day! The great thing is that Nolan is doing good! GO NOLAN! GO NOLAN! I'm thinking about you, loving you and praying for you always! I asked God for all things that I might enjoy life. He gave me life that I might enjoy all things. Oh Lord, how like You to give me what I need instead of what I ask for. Thank You for always providing the best for me and for my family. Love, Aunt Chelle The Colony, TX USA - Wednesday, July 30, 2003 10:39 AM CDT Nancy and Family - I am so sorry to hear that you won't be going home on Saturday, I know that must be frustrating. Keep up your courage, you have made it so far since you first got there. We will pray that the next week will go quickly and that you will soon be returning to Colorado. Susan Gothard <sgothard@hitachiconsulting.com> Rowlett, TX - Wednesday, July 30, 2003 9:40 AM CDT Nancy, August 11 is still better than October 11, and way better than November 11! Your mission at Duke must not be quite finished, God must have more for you to do, one more hand for you to hold, one more of your bright smiles to share! How exciting that God is allowing you to minister there one more week! Hang in there just a bit longer, your cozy bed will still be waiting for you! Tammy Rajabi <TammyRajabi@aol.com> Katy, TX - Wednesday, July 30, 2003 9:11 AM CDT Sorry to hear of yet another delay for your much-awaited trip back to Colorado but hey, just look at how far you've come. Although it seems like eternity, I know y'all can make it for one more week. Hang in there. You'll be boarding that plane before you know it. Until then, Nolan, you keep eating those Cheetos!! Kim Barron <kbarron@ibsa.com> Rowlett, TX USA - Wednesday, July 30, 2003 8:20 AM CDT God is just saying "Be patient." I am always blessed when I read your up-dates. Even through a moment that could seem to be a set back...you are praising the Lord. What a faithful attitude. God is working in mighty ways. His timing is perfect. I am contining to pray for you and your family. Safe travel mercies for Sam as he goes back and forth this week, continued health for Nolan, peace and patience for the family. Thank you for sharing your faith and journey, you are touching many lives with Christ's love. His love is shining through you. Tiffany Eden <cmctiffanyeden@yahoo.com> Twin Falls, ID USA - Wednesday, July 30, 2003 0:21 AM CDT Praise Him, Praise Him, Praise Him!!!!! What a sigh of relief! Home again, Home again, jiggyed jig! I am so happy for your family! Tammy Rajabi Katy, TX - Tuesday, July 29, 2003 4:50 PM CDT Way to go Nolan and Congratulations!!!! I know you are all so excited to be going home. I will continue praying that everything goes smoothly. Kelly Waddell <http://www.geocities.com/calebwaddell> Southaven, MS USA - Tuesday, July 29, 2003 2:50 PM CDT Yahoo, yahoo, yahoo!!!!! Sam and Nancy, I am so happy for you. I can't believe it. Way to go Nolan!!! It will be so wonderful to have your little family together again and at home. Ah, you made my day. Love, Anne Anne Himes <www.caringbridge.org/page/andrewh> Boonsboro, md USA - Tuesday, July 29, 2003 2:08 PM CDT YES!!!!!!!!!!!!!!!!!!!! Way to go Noaln!!!!! Nancy, I am soooooo happy for you! I am so glad that you will be going home! My thoughts and prayers will continue to be with you that things kept going up hill. CONGRATS!!!! God Bless you all!! I am so happy for you Stephanie Conner Cana, VA - Tuesday, July 29, 2003 12:39 AM CDT YAHOOOOO!!! We're thrilled to have y'all coming home!! We'll try and contain our excitement and not mob y'all at the airport!! Want to minimize germs for Nolan, but we can't wait to have y'all home!! This is such great news!! See you SOON!! Vicki Nave <QtyNave@aol.com> Broomfield, CO USA - Tuesday, July 29, 2003 12:33 AM CDT Yeah Nolan!!!! I am so happy that you get to go HOME! Nancy, I can't imagine how releived you must be that this chapter is over! We will be praying that this next chapter goes very smoothly! Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Tuesday, July 29, 2003 12:30 AM CDT GREAT NEWS!!!! I know how happy you all must be. Nolan will do so much better in his home environment. I have seen a lot of progress in Aaron over the short week we have been home. I am sooo happy for all of you!!! I will certainly keep praying for your family!!! Trisha Athy <caringbridge.org/il/aaronathy> IL - Tuesday, July 29, 2003 11:22 AM CDT WOW----- I have tears of joy for you all! YEAH YEAH!!!! God is good!!! What wonderful news! Good luck......keep going with the good work Nolan! elisabeth - Tuesday, July 29, 2003 10:49 AM CDT Yeah Nolan! That's great to be going home...not that we want to push you out of the great state of NC! Seriously, we are soooo happy for you and wish you a safe trip home. You will continue to be in our prayers as you continue on this journey. PS-my 3 year old loves cheese balls too! Randy, Robin, Jake & Grace Boger Lewisville, NC - Tuesday, July 29, 2003 9:22 AM CDT WOW! What terrific news! You let me know what I can do to get things ready!! Way to go, Nolan! The Bells Erie, CO - Tuesday, July 29, 2003 9:16 AM CDT MAY GOD BLESS YOU AND KEEP YOU IN YOUR JOURNEY!! YOU BROUGHT TEARS OF JOYS TO MY EYES WHEN I READ THAT YOU ARE GOING HOME!!!!! WE HOPE AND PRAY THAT NOLAN WILL CONTINUE TO BE BLESSED WITH IMPROVEMENTS DAILY!! LOVE IN CHRIST-THE WIMMERS ELIZABETH <ELIZABETH.WIMMER@NAUTICA.COM> MARTINSVILLE, VA USA - Tuesday, July 29, 2003 8:24 AM CDT THIS IS SO EXCITING! I AM SO HAPPY FOR YOUR FAMILY. I WILL STILL BE SENDING PRAYERS YOUR WAY FOR A CONTINUED RECOVERY. MAY THE LORD BLESS EACH OF YOU!!! LINDA BURFIELD, EDEE'S FRIEND P.S. PRAYING FOR THE OTHER CHILDREN, ALSO. LINDA BURFIELD ABILENE, TX USA - Tuesday, July 29, 2003 8:23 AM CDT Congratulations! I pray that things continue to go well and that you indeed get to GO HOME this weekend and that Nolan continues to improve along his road to complete recovery. Nancy & Ed Aman <nancyaman@charter.net> Sanford, NC - Tuesday, July 29, 2003 7:41 AM CDT G'Mornin!!!! And what GREAT news to hear Nolan is headed home.... Y IPPPPPPPPPPPPPPPPIEEE........ BIG smiles from MAINE....... Prayers continue to come your way.... Love & Hugs for you all. "Reese's Nana & Grampy" Chris & Noreen <talkntalkn@aol.com> - Tuesday, July 29, 2003 6:46 AM CDT Hi Nancy and Sam-- I'm sitting here balling right now, after reading your journal entry...mixed emotions of being so happy and excited that you guys get to take Nolan home, and totally selfish feelings of sadness, not wanting you to leave yet. We are going to miss you SO MUCH! I look for your smiling faces whenever we get to clinic, and am almost disappointed when you aren't there. Thanks so much for being such good friends and we are really going to miss you...especially that little smile of Nolan's that can light up a room. Love you and hope we get to see you again before you leave. Princess Madison's Family Mike, Marian, Mikey and Madi <mitchem@wwdb.org> Durham?, NC/CA? - Tuesday, July 29, 2003 6:26 AM CDT Hello to all of you! YEA!!!, what good news! I checked the website on my way to bed and so glad I did! God is so good! I can only imagine the excitement within the Ramsey family! Nolan, you have been a very brave little guy during all this time. I know God has something very special for you in His service! May God continue to bless each one of you as He leads you into and through the next chapter. I love you all, Winona Foley Garland, TX - Monday, July 28, 2003 11:28 PM CDT I won't sleep tonight -- my heart is overflowing! You're going home Nolan! WooWhooo! Stay healthy little buddy and rest up - lot's of great changes are coming your way :o) I'm praying for you, thinking about you and loving you! Rest well family. "All that I have seen readies me to trust our Creator for all that I have not seen." Love, Chelle The Colony, TX USA - Monday, July 28, 2003 11:14 PM CDT Its awesome your going home!!! Im so happy for you. Sam, thanks for the lift to the airport. Keep us up to date. Chris Dibbern - Monday, July 28, 2003 10:47 PM CDT YEAH! We are so glad to hear that Nolan is well enough to go home. We long to hear those words from the doctors. We pray that nothing delays this trip home for you. We will miss you but are glad your able to go back to your home. Love, Carrie Carrie, Patrick, & Jordan Horton <iteach2u@hotmail.com> - Monday, July 28, 2003 10:09 PM CDT YEAH NOLAN!!!!!!! Awesome news that you maybe heading home on Saturday. Buddy we are praying that this comes to pass. Uncle Bubba <michael_r_davis@sbcglobal.net> Dallas, TX USA - Monday, July 28, 2003 9:31 PM CDT Hi Noah, My name is Ann. I work where Jordan's Aunt Angie works and have gotten to "know" many of you through visiting Jordan's journal updates. I am SO happy that you are doing so well! I keep you in my prayers and am really pulling for you to get to go home soon! Take care and enjoy those cheetos! Ann Keran <akeran@isbe.net> Springfield, IL Sangamon - Monday, July 28, 2003 11:49 AM CDT All right Nolan!!! Glad to hear you are eating. Hope you get to go home soon. Cathy Rusyniak <Garbmike@optonline.net> Rockaway, nj - Monday, July 28, 2003 10:23 AM CDT Yeah Nolan!! It's GREAT news to check in this morning and find you're doing so well! It makes what started off to be a bad Monday - a GOOD one :-) I'll continue praying and counting down the days till you can go home! You keep up the good work my little one!! Sam and Nancy, sounds like things are buzzing along at the apartment. Almost has a familiar ring of "normal" to it - not 100% normal just yet, but you'll be home before you know it and life will kick up another notch! Sam, sorry I didn't get a chance to call back last night. Hunter and bedtime just didn't mix - it took awhile to get him "settled" and asleep! I'll give you a call today. Give the kids a kiss from me. I love you and I'll talk with you soon! What's true of biology is also true of faith: If it isn't growing, it's probably dead. Let your roots grow down into Him and draw up nourishment from Him. See that you go on growing in the Lord... [Colossians 2:7] Love, Aunt Chelle The Colony, TX USA - Monday, July 28, 2003 9:36 AM CDT Praise God for His faithfulness!!!! I am so excited-can't wait to tell everyone I know!!! Way to go Nolan-keep it up my little friend!! We love you guys!!! The Strickland's <hoddyg@ev1.net> Katy, tx - Monday, July 28, 2003 8:25 AM CDT The Ramseys, What wonderful news. God is good and does provide. We pray that all continues to go well with Nolan and you will be returning home soon. The picture up-dates are so cute. I like his bald head. I know how that is - I had chem back in 2001. The family picture is really good and I know you will cherish it forever. Cooper and McKenzie it will not be long until school starts so you all study hard and make good grades for mommy and daddy. I saw Nana today at church and as always she had a smile on her face. I know she has been a godsend for you all. She is a wonderful lady and we have come to appreciate and love her very much. Again, we pray all goes well in the next few weeks. In Christian love, Betty and Dub Wood, New Liberty Baptist Church Betty and Dub Wood Mesquite, TX USA - Sunday, July 27, 2003 8:55 PM CDT Hello Family I am so pleased that Nolan is doing so well and I just pray you all will soon be home in Colorado. You know if I can be of help in anyway I will be more than ready to help. I love you all. I miss you all and wish I could have helped out more. I enjoyed the short vist but it just was not long enough. Give each of the kids a big hug from their Nana. The Lord has been so good to our family I just can't keep from giving him the Praise. He has blessed us with such a speical child in Nolan. He knew what this family needed. Love Nana Lorene Davis <Nanaingarland@aol.com> Garland, Tx - Sunday, July 27, 2003 8:43 PM CDT Yeah Nolan!! We're so excited to hear you're eating. Keep up the good work; we can't wait for y'all to come home. Vicki Nave <QtyNave@aol.com> Broomfield, CO USA - Sunday, July 27, 2003 4:15 PM CDT Hello precious Nolan and family. I'm so glad you e-mailed me this address and the addresses of your friends that I can pray for. God is always right, always pure, and always faithful! You are so very special to me. Keep up your faith and I will continue to uphold you in my prayers. Love to you all. Cheryl Price Russellville, AR USA - Sunday, July 27, 2003 3:47 PM CDT Way to go Nolan! We are glad to hear he is eating better and will soon be off that nasty TPN! We hope you will be able to go home on the 8th, even though we will miss you. Take care. Nolan, keep up the good work! Love, Carrie Carrie, Patrick, & Jordan Horton <iteach2u@hotmail.com> - Sunday, July 27, 2003 11:07 AM CDT Hello Ramsey's!!!! I'm so excited Nolan is doing so well!!! Thank you Jesus for the hope we have in you!! It "sounds" like life is taking on a normal roar in your house.(as normal as normal can be). You know I take that noise for granted a lot of the time-thanks for putting it in perspective for me. Well, the Strickland's made it to Amarillo with nare a scratch(our sanity in tack too). Tell Sam, Ray and Daddy won 1st place in their flight in Daddy's Country Club tourney this weekend. Needless to say they are both very happy. Tell Mackenzie Raegan misses her terribly-just Friday we had a moment in the -ar-one of tears, and remembrance-my Raegan sure does miss her Boo!!! Tell Coop-Mackenzie misses him too-she told someone the other day he was cute!!!! I will check in later this week to see if anything has changed. Please call -e if you get the chance-just hanging out in ole Amarillo. Better yet, I'll try to ring you!!! We love you guys and could not be anymore pleased with the news. Talk to you very soon!!! Holly Holly Strickland <hoddyg@ev1.net> Katy , Tx - Sunday, July 27, 2003 8:43 AM CDT Hi guys! Our block is pretty lonely around here! You need to get home! So glad to hear that Nolan is eating again, and that a departure date is in the works! Let me know what you need me to get ready! We miss you! The Bells Erie, CO - Saturday, July 26, 2003 10:29 PM CDT Aloha, Have not seen you guys in clinic lately, and boy have we become spoiled with seeing more frequent updates! We pray that this message finds Nolan and you all doing well, and hopefully making preparations for the trek home. We continue to keep you all in our thoughts and prayers. God's blessings to you all. Aloha, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Saturday, July 26, 2003 9:08 PM CDT We just wanted to check for updates and say hello. We pray for your family. Love, Tracy Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)  Tracy and Katia - Saturday, July 26, 2003 12:08 AM CDT Hey Nancy, I glad to hear the good news. I will be praying that everything keeps going well and you can go HOME!!! YEAH! Remember I'm always praying for you! OH, if that was Kim W.'s Maddie, then tell her she still owes me a margarita! LOL Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson - Friday, July 25, 2003 5:36 PM CDT Hi Sam and Nancy and kiddos! We are finally back in Katy and I have missed keeping up with you guys daily! I am so glad to hear that you are all back together as a family - amazing the strength we get just from being around the ones we love and that love us! Also, I am glad to read that Nolan is finally eating - yeah!!! I will keep praying for and hoping that you get to go home in just a few short weeks - keep eating, Nolan! Glad to hear that things are otherwise going well - I know you hold your breath everyday as Nolan continues to do well!!! We're praying for you and thinking about you always! Love, April April Kreger <kreger90@houston.rr.com> Katy, TX USA - Friday, July 25, 2003 7:25 AM CDT Wonderful to read positive news!! How exciting that you are all together! Will keep praying for that discharge.....God Bless Elisabeth - Thursday, July 24, 2003 9:06 PM CDT hello i read your wonderful supportive remarks on isabella faith's caringbridge page. she is my granddaughter and everett is my middle son. thanks to you all who leave your comments . i know it helps us all.God bless you all. and what a sweetie your son is!! marilyn harp. marilyn harp <harpsisus@netscape.net> sioux city , ia us - Thursday, July 24, 2003 8:35 PM CDT Hey guys, It was so great having Sam in Sunday School class at First Baptist Church Katy. It seemed like old times. You guys are always in our thoughts and prayers. I love the photos of the kids; Nolan seems to look more & more like Sam in his eyes. He is just darling! Cooper and MacKenzie are getting to big. Can you believe we are applying for College? I got tears in my eye's reading the end of your journal today. By the time they are teenagers they don’t like too many hugs & kisses, they are to busy working on being independent. I am so happy that you guys are getting so much great news. You sound so full of hope. You are truly an inspiration for us all. May you find Joy n’ Jesus this day, Love, Pam, Dale, Krysta & DJ. PS Great News, we are voting on a new Pastor in a few Sundays. Can you believe it! Pam Wilson <pam@able-huber.com> Katy, TX - Thursday, July 24, 2003 7:31 PM CDT Sure have missed seeing you all this week. Mikey will be back from Asheville on Sunday, so hope to let all the kids play together on Monday. Nolan--Keep eating little buddy! Good job! Hugs to all of you! Mike, Marian, Mikey and Madi Princess Madison's Family <www.caringbridge.org/nc/princessmadison> Durham, NC - Thursday, July 24, 2003 12:43 AM CDT Ramsey's! Yeah! still 100% donor cells! That is great! I will be praying that Nolan continues to do so well and you will be able to go HOME on August 8th! Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Thursday, July 24, 2003 12:24 AM CDT Praying that things may continue to move in the right direction, and that you may go home August 8. BPL & Family - Thursday, July 24, 2003 12:20 AM CDT August 8th- I will pray for August 8th!!!!!!!! Cathy Peters <www.caringbridge.org/canada/isobel> - Thursday, July 24, 2003 11:31 AM CDT Dear little Nolan, I'm sorry I haven't made an entry over the past week. Things on my side of the world have been a bit hectic, but you have never left my thoughts! It was wonderful to see everyone last weekend - the only thing missing was YOU! We all wore our Nolan buttons though, and as I predicted you were the topic of conversation throughout the weekend :-) Wonderful news that you are finally eating. And YEAH!! that you're still 100% girl cells! (by the time you start school you might wanna start shedding some of those "girl" cells or you may get picked on a lot!!...smile… but hey, your cousin, Chase, will be right behind you - he's 'got your back' just in case!!) I'm praying for August 8th. Praying that you stay healthy enough and strong enough to go home to Colorado. It will probably take a while for you to remember your "old" surroundings, but how wonderful it will be for you and the family to be "home." You'll slip back into a routine before you know it! I love you Nolie. And it's true what all the entries have said - GOD IS GOOD! Through the ups and the downs He continues to bless us all! My heart is still a little sore this week. It was hard to say goodbye after your uncle John's wedding. I miss everyone so much. I pray we will all be together again soon. Well, take care buddy :o) I'll be stopping by a little later to check on you again. Much love, (((hugs))) and kisses across the miles!! "Keep your face to the sunshine and you cannot see the shadows." There is no shadow, Lord, if I place myself directly in the sunshine of Your presence. Thank you Lord! Love, Aunt Chelle The Colony, TX USA - Thursday, July 24, 2003 10:08 AM CDT My fingers are crossed for that trip home around the 8th! Great news on the engraftment still at 100%!!!!! Woo Hoo!! Love, Lisa Post <ltjpost@cox.net> - Thursday, July 24, 2003 6:30 AM CDT Hey Chickie Glad to hear all the good news!!! I knew you would get to leave soon. Miss you so much. Have been busy trying to get setup for Jeremiah. Everyone has been taking me out to lunch. I will try to call tomorrow. Try to get some sleep. I haven't had trouble sleeping but am exhausted. I think it is all just catching up with me. Give everyone a hug for me. We will chat soon. Love ya!! Peggy <pegakamogan2@aol.com> Davenport, IA USA - Wednesday, July 23, 2003 9:54 PM CDT How wonderful that you are all together!!!!! Next stop.....Boulder.......great to read that Nolan is off his fruit loop diet....pray there is continuous improvement and you can start your trip home. Glad you enjoyed the wedding. God Bless! Elisabeth - Wednesday, July 23, 2003 8:36 PM CDT We're going HOME!!!! I just knew you guys would have left before us! I know you're not far behind us. We'll continue to follow your updates. TAKE CARE! and Keep Praying, Ellen www.caringbridge.org/page/andrewshope - Wednesday, July 23, 2003 8:34 PM CDT Hey everyone. I have never met any of you, but I love checking in on Nolan to see how he is doing. It is so good that the whole family is together again. You don't have to worry about updating everyday unless you want to. Just have fun with your family and do what you have to do with little Nolan. Take care. I pray that you all can be together in your own home soon! :-) Rosemary <Rosebudkissie1@aol.com> NC USA - Wednesday, July 23, 2003 7:39 PM CDT Hello Ramseys!! What good news to hear from all of you! I know you are so thrilled to have everyone together! Visited with Lorene Monday, heard the wedding was so pretty and that Cooper and MacKenzie "were the stars"! God is sooo good!! You know that and acknowledge it daily! Thanks for inspiring others by praising Him and giving Him all the credit for everything. Hope good things continue to happen and you will soon ALL be HOME in COLORADO! Take care. Love you all, Winona Foley Garland, TX - Wednesday, July 23, 2003 6:38 PM CDT Dear Family, Sam and Nancy, how wonderful it was to see you both. Everything would have been complete if our little Nolan could have been there also. You both look wonderful, especially you Nancy. You are doing a fantastic job!!Nolan, good for you on eating!!! Keep it up buddy so you can go home! We are wearing your picture (button) all the time and people are always asking about you. Of course they think you are beautiful and you are. Hope you can be home by August 15th when we come to Colorado. Can hardly wait to see you. I know you are all so happy to be together again as a family, but oh how we miss Cooper and Mackenzie. It is just too quiet and I expect you to coming running around the corner any minute. We enjoyed having you so much, but you need to be a family again. Take care of each other and give each other kisses from us. Remember how very much we love you and we are praying for all of you everyday. Nolan - start drinking and keep up the eating!! God bless you all. Love - Grammy and Grandpa Edith and Ron Heilhecker Abilene, TX USA - Wednesday, July 23, 2003 9:38 AM CDT Nancy, How wonderful to hear how great Nolan is doing. I continue to pray for him everyday and the rest of your family. I pary that very soon you will be updating us from home, real home. Continued thoughts and prayers always! God Bless you all. Stephanie Conner Cana, Va - Wednesday, July 23, 2003 8:28 AM CDT Hello everyone! Glad you are finally back in the same place as a family again. Just wanted to let you know that I still continue to check in on Nolie and pray for your family daily. I am glad to hear that Nolie's appetite is picking up and am keeping my fingers crossed that you can return home soon! God Bless you all for your strength and for all the care you have given to little Nolan. He is such a blessing to everyone and continues to touch lives on a daily basis!! Merisue Donovant <merisuec@aol.com> Winston-Salem, NC - Wednesday, July 23, 2003 7:22 AM CDT I am glad you are all together. Sometimes the noise makes music if you listen really close:) Love, Tracy Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)  Tracy and Katia - Tuesday, July 22, 2003 8:13 AM CDT Now, isn't the Lord just the greatest? He works it out so you can go to the wedding, bring back your older kids, fill the apartment with family and friends galore, get Nolan back to eating, and tops it off with the little guy keeping his GLASSES on (which I could never get my girls to do - and they're grown and still won't wear them!)!!! Thank you for so much to praise the Lord for tonight! And we're praying for August 8 - or sooner! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Tuesday, July 22, 2003 0:42 AM CDT Helloooo Ramsey's!!! How's the noise level in your quiet apartment??? Don't you wish you knew what Nolan is thinkin' when those precious siblings of his are acting like the precious angels they are. I can only imagine the look on his face-Hey, where did the peace and quiet go? Hey-that's my toy! Hey, why do you feel you have to pick me up all the time? I or should I say we miss your little angels soo much-we miss you big angels too!! I ran across that sweet picture of Nolie and Sloanie in the pack n play when they were both babes. My how time passes. My prayer for you is God will hear your heart and you will be able to go home by early August. I really miss you and can't wait to see you sometime in September. Tell everyone hello from the Strickland clan and pray for us on Wednesday-10 hour drive in the van with all the girls!!!!! We continue to lift ya'll up in our prayers. Raegan plans on calling Boo Bear Tuesday. Love you!! Holly Strickland <hoddyg@ev1.net> Katy, Tx USA - Monday, July 21, 2003 11:19 PM CDT Congratulations on getting everyone under one roof. I know y'all are happy to be together again, but we miss you all like crazy! Good luck on the eating! I remember when Amanda would only eat brown sugar cinnamon Pop Tarts, fishsticks, pizza and cheese. Of course, she's not much better now! Maybe you can give us pointers when you get home! LOL! Vicki Nave <QtyNave@aol.com> Broomfield, CO - Monday, July 21, 2003 10:32 PM CDT Hi friend! I think about you and pray for you all the time! I know you are sooooo ready to be at home and I pray that it will be time for that soon! Please let me know when you find a way to encourage Nolan to eat!! Kyle only likes pizza rolls and Burger King chicken!! Didn't you tell me once that you only liked Whataburger and your parents would take you there all the time!!?? God bless! Kyndal Kyndal Bass <brnbass2@aol.com> Frisco, TX USA - Monday, July 21, 2003 1:05 PM CDT { ahem } There once was a young boy named Nolan, Bright froot-loops he always was rollin' When asked why he did it, He said, "Don't you get it?" "I'm bored, and I wanna go bowlin!" { bowing } Thank you, thank you, I'll be here all week. Don't forget to tip your server, and drive safely! Ol' Weird Philippe Broomfield, CO USA - Monday, July 21, 2003 12:33 AM CDT We are very happy to hear that Nolan is doing well and we pray for him going back home soon. We would like to thank you from the bottom of our hearts for your support to us during our very hard days at Duke. You are a wonderful family and we feel blessed to having met you. We will be in touch! Marianna-Savvas. Marianna-Savvas Lamia, Greece - Monday, July 21, 2003 2:37 AM CDT Good Morning! I'm up early this morning and thought I would check in on you all. Nancy, your spirits seem lifted and I'm so glad for that. I know you will miss your friend, but I know God will fill the space that is left, He is so faithful isn't He! I will pray that Nolan's appetite picks up and he starts to eat other things! I like Fruit Loops too, all the colors are so cheerful!, so I can understand his preference:). Thinking of you ... Love, Cindy Cindy Scobee <cdscobee@msn.com> Scotch Plains, NJ 07076 - Sunday, July 20, 2003 4:13 AM CDT Nolan, We are so pleased that you will not need a shunt. What a relief! We will continue to pray that your appetite improves so that you can be given the 'okay' to go home. God bless, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Saturday, July 19, 2003 9:05 PM CDT We don't sign every time we read about Nolan, but you are always in our thoughts & prayers. Of course, we think of you all often. We are still enjoying the house & it is a constant reminder of all of you. Some mail came for you today; probably junk, but we will send it on in case it is "real" mail. Love, Leonard & Rosie Leonard & Rosie Barrera <lbarrera2@houston.rr.com> Katy, TX USA - Friday, July 18, 2003 5:30 PM CDT Nancy, I continue to pray for you. I hope the wedding in Texas was lovely and just the break and renewal that you needed. How did it go with Stacey and Beverly taking care of Nolan? I pray it went well with no incident. I have the time available in early August to help if you need me. Just let me know. I sure pray that you don't need me and will be home here by then. Take care! Marybeth Bartilson <mbmom4kids@yahoo.com> - Friday, July 18, 2003 2:09 PM CDT Well, time flies when you're having fun--NOT. I'm sorry I haven't signed in lately. The past few weeks have been quite busy. We are finally getting our funding at the end of the month. So, we have been preparing everything you could possibly imagine to get started on the project. Nancy, you know what this means--I get to quit and be a MOM again!!!!! Yeah. There's nothing better than being there 24-7 for your kids. I haven't been able to do that in so long. It's like carving a Turkey and cutting pieces of me away for every duty I have. Your children are so blessed to have a Godly Mom and one that is there all the time. Don't ever take that for granted. Don't get me wrong, God has carried us the whole way. He leads us down the paths in order for us to draw nearer to him. Hard to understand, for most. God has such a devine plan for your family. We really miss you all so much. Keep your chin up and HOME will be just a blink away. God has his hands on your precious child. Well, I'll say bye for now. Kiss Nolan for me. Tell Sam and the kids hello for all of us. Lesha Daniel Katy, TX - Friday, July 18, 2003 11:48 AM CDT Come on Nolie!! Eat, eat, eat!!! Love, Lisa Post <ltjpost@cox.net> - Friday, July 18, 2003 11:34 AM CDT We are still praying here in Katy!!!! Make ya smile - Brenden and I were looking thru his scrapbooks from First Steps and saw Mackenzie's pictures, of course he called her by her "real" name, Boo! Poor Tandy, try as she might she just could not get the kids to call her by her given name! I must have been scolded by her at least a dozen time myself for calling her Boo! So glad things are going smoothly. And hey Nancy, all Ryan wants to eat is Fruit Loops too!! Of course I can sneak in an occasional PB&J on waffle sandwich now and then. Maybe if you try offering Nolan some Apple Jacks he will have a more rounded diet! :) Luv ya, Tammy Rajabi Katy, TX - Friday, July 18, 2003 9:53 AM CDT Nancy and Sam It is going to be hard going home and not seeing you everyday. I will miss before we are even out of town. Hope you can relax and have a good time at the wedding. Thanks for the picture!!! I will call when we get home. Love you all!!! Peggy & Jeremiah <caringbridge.org/ia/jeremiah> Davenport, IA USA - Friday, July 18, 2003 7:46 AM CDT Hey Ramsey's I hear Beverley made it safe and sound. Wouldn't take too many more and we would have the whole congregation there. Well guys I want you to enjoy the wedding and see how pretty your little Kenzie is all dressed up. Beverley and Stacey will do just fine. I think Nolan might be starting a FLFD (Fruit Loop Fad Diet) I say everyone should just eat fruit loops until he gets home and is all better. I am praying for all of you because it is a great strain on the whole family. But Ephesians 3:20 says "Now to Him who is able to do exceedingly abundantly above all we can think or ask, to Him be glory." Hang in there its not that long now and you will be making that western trek and you will be back in Colorado in no time. Enjoy where you are.You have made some fantastic friends there in NC and Celebrate the fact that you have been a great encouragement to so many. Nancy, When you get back we will all get together and belly laugh until our sides hurt. Love you guys!!!! Pastor Dwayne and Beverley <drbartley@msn.com> Lafayette, CO U - Friday, July 18, 2003 7:31 AM CDT Hi Nolan :o) How are you little one? I see that Ol' Weird Philippe signed before me and I must say I feel a little "pressure" to come up with something "creative" in my message to you!...smile... I LOVE reading his entries! If you could read they'd make you giggle -- which is GREAT because giggling is good for the soul! So keep 'em coming Ol' Weird Philippe!! I hope you're having a good day today. I've thought about you all afternoon. I can't wait to see your mommy and daddy, but boy will the family miss YOU! Don't fret - we still have to get your Aunt Rhonda and Uncle Bernie married (not to each other of course!)... can't say when that will happen. Anyway, my point is that you've still got lot's of time to prepare for a couple of other wedding festivities in the near future. I know you will be the 2nd main topic of conversation all weekend. (I have to say 2nd because technically it IS your Uncle John's special day!). I love you. I'm praying for you. Keep talking with those angels and hang tight buddy! You will be home with familiar faces and surroundings soon. Lord, I thank You for my family. Bless and keep each of them -- special persons You created and filled with qualities that are so precious to me. Thank You for all the times we've shared. Love, Aunt Chelle The Colony, TX USA - Thursday, July 17, 2003 4:52 PM CDT Nolan Ramsey, The Froot-Loop KING! YOW, baby! How ya' DOIN? You do realize that you've got everybody freaked out with this Froot-Loop kick of yours, don't you? If you're trying to make some kind of point, I have to say it doesn't seem to be working. Look at your history - when Gandhi went on a hunger strike, it worked, because everyone knew *why* he was doing it. You, my man, my little giggling ball of negative entropy, are just confusing the crap out of everyone. People worldwide are saying, "Nolan won't eat anything but Froot-Loops! How strange!" - but they're not getting your MESSAGE. See, I think you need a PR firm - a marketing man - a ten-city billboard blitz! You could be staring down at Seattle, Denver, Houston, Los Angeles, grinning at traffic with a Froot-Loop in your hand, right above a message in six-foot-high letters: "WHY AM I EATING NOTHING BUT FROOT-LOOPS? BECAUSE I WANT TO GO HOME, THAT'S WHY!" Or, you know, whatever - maybe you're on strike because you want a pony, or a python, perhaps a peccary. What do I know? See, you've got even *me* fooled, and I'm one of the most loyal underlings in your Secret Cabal To Take Over The World(TM). Unless.... Unless this is all part of a master plan! Young man - have you sneaked off and signed an endorsement deal with Toucan Sam while we weren't looking? I had no idea you had such subtle business acumen at such a young age. I am in awe, sir, indeed I am. Keep me in mind when you get ready for an IPO - your business empire will make Martha Stewart's look like a lemonade stand in Chapter 11. Keep swinging - and give your Momma a Froot-Loop for me! Ol' Weird Philippe Broomfield, CO USA - Thursday, July 17, 2003 12:35 AM CDT Hope things are going well and that Nolan is starting to eat a bit more and improve daily......hope you have a wonderful time at the wedding, how special that you will be able to see your children participate.........God bless with healing hugs~~~~ Elisabeth - Thursday, July 17, 2003 11:12 AM CDT I am happy to hear that things are going well! Congratualtions on hitting day 100! That's a big milestine- I am so proud of you Nolan! I hope that Nolan will start to eat more than just Fruit Loops ! I know how frustrating it is when your child doesn't eat but try not to get discouraged- it will happen! Take Care and I will continue my prayers! Cathy Peters <www.caringbridge.org/canada/isobel> - Thursday, July 17, 2003 10:51 AM CDT Always praying for baby Nolan. I am glad the spinal went well. I know it is hard watching your friends go home. Jillian relapsed on day 125 right after having her lines removed and 2 days before we were supposed to go home. I already sent a lot of our stuff home and we ended up there for 7 more weeks. What is important is that you bring a healthy Nolan home and you will. Give Mr. Sam an angel hug from Jillian. She sure loved to talk to him. She would say to me "I'm going to sit next to that nice man in the fish tank room" and she would talk his ear off. God bless! Laura and Angel Jillian <http://caringbridge.org/fl/jillian/> Naples, FL - Thursday, July 17, 2003 10:24 AM CDT Good Morning, Just checking in on you. Sam and Nancy, cannot believe we are going to see you tomorrow. The only bad part is our precious Nolan will not be with you. Nolan, we will miss you so very much and just pray we see you very soon!! Cooper and Mackenzie were really excited this morning when I told them we leave for Aunt Chelle's tomorrow. They were so cute. After they said yea then they looked at me and said, "but we are going to miss ya'll, what will you do without us". We told them we would miss them so much and we would just have to get used to them not being there. They have been a joy to keep and added a lot of fun to our lives. We will miss them very much. Take care of each other and we will see you tomorrow! Nolan, start eating something besides fruit loops and we will see you soon. We love you so much!! Sam and Nancy, have a safe flight. Stacy and Beverly - thank you so much for staying with Nolan and allowing Nancy to come with Sam. God has truly blessed them with such very wonderful friends and we are very thankful for you. We love you all very much! God bless all of you. Grammy and Grandpa Ron and Edith Heilhecker Abilene, TX USA - Thursday, July 17, 2003 8:33 AM CDT Hello. I got Nolan's web address off of Madi's site. I have a daughter with Hurler's, Laney. She was transplated at Duke on Oct. 16,2002. We will be back at Duke Monday the 21st for our nine months studies...I hope we will have the chance to meet! Please take care and I'll be checking back in to see how Nolan is doing. Sending lots of prayers your way.... caringbridge.org/tn/laney Beth Anne Biggs <bigg6550@bellsouth.net> Rogersville, TN - Wednesday, July 16, 2003 10:00 PM CDT Hi, It's just me again checking on Little Nolan. I am Helen from Northside Baptist in Garland, TX. We are all still praying for Nolan and his whole family. I know God will bless you all. God be with you and surround you with lots of love. Helen Rivers Garland, TX Dallas - Wednesday, July 16, 2003 9:16 PM CDT Michelle Strayer shared with us at EDS today about Nolan's challenge. I am a believer in Jesus Christ and the hope that He can and will deliver the healing Nolan needs. I will put Nolan and your family on my personal and my church's prayer list. My husband has been healed of cancer within the past 3 years and I know what miracles God can do when Dr's may not be sure. Keep the faith! Marilyn Lockett Flower Mound, TX USA - Wednesday, July 16, 2003 4:02 PM CDT Good morning Family, Glad to hear your "terrible Tuesday" was not so terrible! I'm happy that the spinal tap is out of the way and that Nolan did well with it -- daddy brings lots of good luck with him when he visits :-) ...although I know it must be tough for daddy to have to watch his little Nolan endure this stuff! Nancy, I'll bet the days fly by with the busy medical schedule yet when "home" enters your mind the clock seems to STOP! Hold tight dear sister! You'll be home, sleeping in your own bed before you know it! (you don't honestly think you'll have the luxury of sleeping, do you?!) I'm sure Nolan will appreciate having his room back too! And then of course there's the whole Starbuck's thing that I've still got scheduled for you AND me on my calendar...smile. My dear Nolan, hopefully you'll start feeling the urge to eat - I mean REALLY EAT - soon. Fruit Loops are good I'm sure, but let's be honest ... dry. no milk. Why, the milk is what pulls it all together!! You have no idea what you're missing! Stop eating all those Fruit Loops or you're gonna turn into a Fruit Loop! (for goodness sakes, I sound just like your grammy!). Seriously, I know the no eating can be a problem. I pray that you start to feel "hungry" soon. You are each in my thoughts and prayers every day. I miss "us". I miss the "family". I know things will never be completely back to the old routine, but I can't wait for you to get home. I'm grateful to all of the people that God has surrounded you with Sam and Nancy. What a blessing that you will be able to travel to Dallas for John's wedding and know that little Nolie is in good and loving hands. God is good and how blessed our family is! I love you and I'll see you Friday. Love, Chelle The Colony, TX USA - Wednesday, July 16, 2003 11:05 AM CDT Nancy, I continue to pray for you all and Nolan. God puts him on my mind constantly. I appreciate your updates. I look forward to hearing about his progress. Do say goodbye for me to Peggy and Jeremiah. Give her a hug from me. She is a wonderful lady. Such strength. I am thankful that you are able to go to the wedding. Are you still planning on the kids coming there until you leave? Let me know if I can help in any way at all. Love, Marybeth Marybeth Bartilson <mbmom4kids@yahoo.com> - Wednesday, July 16, 2003 11:02 AM CDT Good morning all, Just checking in on you Nolan. Glad the spinal tap went well. Sam, glad you were there to help out. We are so very thankful that there is no shunt for now. Nolan, hope you are feeling better and will start eating soon (something besides fruit loops). We can hardly wait to see you again. Surely hope you and Mommy will be home when grandpa and I come up in August! Just want to hold you and hug you, rock you and give you lots of kisses! Cooper and Mackenzie will see you soon and are so excited. Bet you will be happy to see them also. They have prayed for you every night and at meal time also since they have been with us. Sam and Nancy - can't wait to see you, seems like so long. Take care of each other and we will see you soon. Love and kisses and God bless you. Grammy Edith Heilhecker Abilene, TX USA - Wednesday, July 16, 2003 11:01 AM CDT Just stopping by to say hi and that I am sending hugs and prayers your way. Hope Nolan starts eating more than fruit loops, but in the meantime, keep 'em coming. He is a beautiful baby. Best wishes for your return home. Martha White <MWhite6@charter.net> Princeton, WV - Wednesday, July 16, 2003 10:14 AM CDT Nancy, glad to hear that things are going well. Praying for you always!! Keep up the good work Nolan and I am praying that Colorado is closer than ever. God Bless! Stephanie Conner Cana, Va - Wednesday, July 16, 2003 8:56 AM CDT Good Morning Nancy, Sam, Nolan and Stacey! So glad the spinal went well(thank you Jesus for Sam being there and helping Nolan through the whole thing!!!)Sorry I didn't get a chance to call yesterday-I will try today. Miss ya'll terribly!! We are constantly praying for little Nolan to get to come home!!! Love you all! The Strickland's <hoddyg@ev1.net> Katy, Tx - Wednesday, July 16, 2003 8:13 AM CDT Hey Family Ramsey!!!! We miss you so much! I keep wanting to call, but this stupid time difference always gets in the way! I don't think you would want to talk to me at midnight! I'm so glad that he doesn't need a shunt. What great news. You'll be home before you know it. I'll try to give you a call tomorrow or Thursday. Kiss my Nolie for me, okay Sam, she can kiss you for me too! Love you all and miss you more. Talk to you soon. Andrea Martini <alexupdate.com> Gig Harbor, Wa - Wednesday, July 16, 2003 1:24 AM CDT Nancy and Family, I came across your website while I was visiting Matthew Sackett's website (and I became familar with his website because my mom was there at Duke to get a cord blood transplant and met Peggy at the apartment). Anyway, your story has touched my heart. I am truely moved by your faith in our Lord, the strength that He has given you and by your sincere love for others that you have met during this time. I have been praying for Matthew and his family, I will also pray for Nolan and your family. The Lord has used you to reach me...God is working in mighty ways. I praise God that He has brought Nolan this far and I ask for Him to continue to work in your precious child... That Nolan will find pleasure in eating other foods besides Fruit Loops, (although, Fruit Loops can be pretty yummy) and that Nolan will keep on improving. I pray that your family will continue to be a light to other families facing simular situations and a support. God is reaching others through you. Thank you. Tiffany Eden <cmctiffanyeden@yahoo.com> Twin Falls, ID USA - Wednesday, July 16, 2003 0:19 AM CDT Lord, we ask in Your precious name, because You said if we did that You would do it!, that You would give Nolan his appetite back, that he will have no more illnesses at all, and that he will be able to go home in a few weeks or less! Thank You that You have given Nolan the miracle of life, and the opportunity to start a new one, free of Hurlers! I know that we will have many opportunities to praise You for milestones in this little guy's life, and it's a privilege we thank You for! In Jesus' amazing name, Amen. Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Tuesday, July 15, 2003 11:38 PM CDT Hi guys! Just checking in with you all - hope you are all settling in and getting ready for your fun weekend! Enjoy yourselves! Talked to Cooper a couple nights ago about the Bionicles - he gave me the low-down on which ones were cool - hope I picked a good one! Hang in there, Mom and Dad! You've come so far, and soon you'll all be together! The Bells Erie, CO - Tuesday, July 15, 2003 9:22 PM CDT Hi Nolan, Just checking in on you. How was your day? I'm thinking about you my sweet nephew! I love you and will check back soon. (((BIG HUGS))) and Kisses!! XXOO! Love, Aunt Chelle The Colony, TX USA - Tuesday, July 15, 2003 8:13 PM CDT Dear Mr. and Mrs. Ramsey, Just thought I would say "hello" and let you know we here back at clinic in Denver are still thinking about you and keeping you and Nolan in our prayers. Hope all continues to go well. No doubt, nice to have the family together for a change -- Enjoy! Again, you're in our thoughts and prayers, Janet Thomas, MD Janet Thomas Denver, CO USA - Tuesday, July 15, 2003 11:59 AM CDT Hello sweet Nolan, I am so glad you have decided to start eating. I was so excited when Mom told me you ate two jars of baby food. I knew you would when you got ready to eat. I sure miss all those naps we took together in the rocking chair. I'll bet Mom and Dad don't rock you as long as Nana did and let you sleep for an hour or two in their arms. I love you and miss you. I know you must be really looking forward to seeing Cooper and Mackenize. I know I would sure like to see them too. It has been a long time since I saw them also. Take good care of Mom and Dad and all those wonderful friends who have been helping out. Ilove you . Nana Lorene Davis <Nanaingarland@aol.com> Garland, TX - Monday, July 14, 2003 10:49 PM CDT Hi, I'm a friend of Marybeth Bartelsons'met her when she lived in NH...we were in choir together.....she sent me the website so I could see and pray...There is power in the name of Jesus! I will pray for Nolan, and his family. sandra - Monday, July 14, 2003 9:09 PM CDT Hello All!!! Just checkin' in to see how the weekend went. So glad to hear that the crying test and the heart test were so good!!! I'm sure the results from the MRI will just take some time-No pressure Nolan!!! Nolan-you are a boy who knows what's good-yum, yum, Froot Loops!!!!! Keep it up little one! I am so deeply thankful to Stacey and Beverley for making the trip possible for you Nancy. God is so good in working out the details. I know Sam would like to take credit-you know he did tell you he would find a way. I love you-hope you can get some good rest now that Sam and Stacey are there. I'll be thinking about you this weekend-trying to convince Ray to go home from Waco by way of Dallas-it's not that far out of the way!!! It will take all I have not to jump in the car and drive to see you. Take lots of pictures of those babes of yours in their duds!!! I told Raegan about Mackenzie and her dress-she's so excited that now they both have been flower girls-she said they will have lots to talk about!!!! Well, I'll call tomorrow. Sleep well. Lots of love!!! Holly Strickland <hoddyg@ev1.net> Katy, Tx - Monday, July 14, 2003 7:04 PM CDT Dear Little Nolan, I am so sorry to hear you arent feeling your best. You are so little to be facing so much and gee You still smile. Take care little one. My prayers are with you. Wanda Moreau Manassas, va - Monday, July 14, 2003 4:58 PM CDT Dear Nancy and precious Nolan, We are so glad that your reports are coming out so well but hope you won't be in pain any longer. That's great that you will be able to attend the wedding! Keeping you in our prayers! Robin Boger Lewisville, NC - Monday, July 14, 2003 3:21 PM CDT Dear Sam, Nancy and Nolan, Just stopping by to say hello and to check up on you. Nolan, I hope that you are not in so much pain anymore. We are so very sorry that you had to have all that pain. What a brave little boy you are. Your little body has been through so much. Wish I could just hold you and hug you and give you lots of kisses! Tell mommy and daddy to do that for us. You know, your Aunt Chelle is right - we have all learned so much from all this and been spiritually strengthened by all this. God has a wonderful plan for you. There is no doubt of that. Just remember how much we love you and are praying for you. Cooper and Mackenzie will be there soon and can hardly wait to see their "Nolie". Sam and Nancy - can hardly wait to see you. Looking forward to it. Cooper and Mackenzie are so excited. They asked again this morning - "how many more days". It will be good for all you to be together again as a family. We will miss them terribly, but this is the best thing for all of you. Take care of each other and give hugs and kisses to Nolan and each other and hold on a little tighter to each other from all of us. Stacey, once again, thanks for all of your help and thank you for staying so Nancy can come to the wedding. God has truly blessed Sam and Nancy to have such wonderful friends. Goodbye for now dear family - see you soon. God bless and keep you. We love you - Grammy and Grandpa Ron and Edith Heilhecker - Monday, July 14, 2003 11:25 AM CDT Oops! Don't know how that happened. I'm checking in on all my "kids" this morning -- I was at Jillian's site and thought I was making an entry for her family... I must have clicked on the wrong window! ...I'm sorry. I need more coffee! I've got to journey back over to Jillian's site. I love you! I'll be back to check in on little Nolie soon :o) Chelle Colony, TX USA - Monday, July 14, 2003 9:32 AM CDT Just checking in. From reading past entries it sounds as though Saturday's celebration of Jillian's life was beautiful. I know that Jillian is in heaven with God - free from pain and sickness - dancing with the angels! But I also know the pain you must feel - being left behind to grieve. Although the time without Jillian will feel like an eternity, one day soon you will all rejoice together... it will be within the twinkling of an eye! Until then, I pray that God will help to offer your family comfort in the coming days. Take care and God bless. Michelle Strayer Nolan Ramsey's Site The Colony, TX USA - Monday, July 14, 2003 9:27 AM CDT Dear Family, Just dropping by to check in on Nolan and say hello. Hopefully this finds him doing well this morning. I'm thinking about each of you and praying for you! Lot's of hugs and love across the miles! Love, Chelle The Colony, TX USA - Monday, July 14, 2003 9:13 AM CDT To the Ramsey Family, It was so good to see Sam at church a few weeks ago. I told him that no one, & I mean no one, has sang "I Pledge Allegiance to the Lamb", since you all moved. God gave that song to Sam to sing & what a wonderful job he always did when he sang those wonderful words! Nancy, We really miss seeing you at FBC. You were so much fun to be around with all your humor. I have been praying for all of you. May God's unsurpassed Peace and Hope be with all of you! Love in Christ Jesus, Linda Pratt Linda Pratt <Lgolf1130w@aol.com> Katy, Tx USA - Sunday, July 13, 2003 4:23 PM CDT Saying a LOT of prayers for you. I hope you are feeling better today:) Visit Katia's Page and sign her guestbook:)  Tracy and Katia - Sunday, July 13, 2003 11:52 AM CDT Praise the Lord for all the good reports and also that you will probably be going to the wedding - how awesome is the Lord! Still praying about the other tests and that he will be healed very soon from the spinal tap! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Saturday, July 12, 2003 5:31 PM CDT Dear Nancy, Sam and Nolan Just wanted to say thank you so much for the love and support you have given my sister Peggy and nephew Jeremiah during their stay at Duke. I know God brings people into our lives and I thank him for you. I am so excited that she will be coming home next week. I pray for your family and hope you will be going home soon. God Bless You... Teresa Marxen <Frommetoyoutm@aol.com> Davenport, IA - Saturday, July 12, 2003 11:50 AM CDT Hey Nolan, Nancy and Stacey! Wow, sounds like your Thursday was quite a day!!! I am so sorry Nolan that you were in pain and to wake up by it-so glad the Lord allows us to not remember such things. I hope Friday went well. My dear Nancy, my prayer for you is some way the details will work out that you will get to go to Dallas. Try to rest this weekend if you can, you sound tired (I wonder why). I just want you to know-I love you and am in awe of your strength-and I know where it comes-because "Nancy" couldn't do it-ONLY God working through you is enabling you to move forward. I have been visualizing since this all started about that we had a pretty big mountain to move to get into the sea-and I step back and look now and see just how far we (everyone who cares and prays for Nolan-in our prays and faith) have moved that mountain. Hang on Chickie!!! You are my hero!! We do not let one day go by without praying for you. Call me whenever you need me-even if there is no mouse! Holly <hoddyg@ev1.net> Katy, Tx - Saturday, July 12, 2003 8:47 AM CDT My dear little Nolan, Glad to hear you slept through the MRI, but I'm sorry about that nasty old Spinal Tap experience you had... mommy said you woke up screaming -- so hey, does this mean you can bail out of that "crying test?" Seems the doctors could just multi-task and get it all in one swoop! (If you could talk you'd probably be telling me you didn't really didn't see the humor in that comment...I'm sorry). I'm so sad that your little body has to endure what would scare the wits out of most adults. What a brave, courageous little boy you are! And what a brave, courageous mommy and daddy you have! Did you know that when your brother, Cooper, was born your mommy and I had to take him to have his heel pricked for the PKU test -- I thought your poor mommy was gonna pass out! She started crying before Cooper did and then had to leave the room... has she come a long way or what?!?! You just hang in there Nolan-- you've got a BIG purpose in life! I believe with all my heart that God has sent you on a mission to strengthen us spiritually and to draw us all closer together in the knowledge and love of God. I am grateful to God for the privilege of learning some great lessons of truth through His tiny messenger -- that's YOU! :o) Rest well tonight sweetheart. Sending you lots of love and (((hugs))) across the miles. XXOO! I love you, Aunt Chelle The Colony, TX USA - Friday, July 11, 2003 11:40 PM CDT Hello Nolan and Family!!! I am sorry to hear that you will not be going home as planned. I know all to well how you feel. But your day will come and then it will be that more special. If you don't mind I would like to ask what a "crying test is"? I wish you all the best of luck with all of Nolan's test. Please give Nolan a big hug from the Athy Family. XOXO Trisha Athy <caringbridge.org/il/aaronathy> Belleville, IL USA - Friday, July 11, 2003 12:30 AM CDT Lord, we ask that Nancy will be able to go to her brother's-in-law wedding and see her family participate. Thank You that You do all things well and that she is willing to accept this, but still, Father, it seems to us that is such a little thing to ask for this dear woman who has maintained such an awesome testimony to us through this ordeal. Thank You for her strength in You, and we trust that unless it would be absolutely out of the question You will make a way for her to go. Thank You that Nolan got through the MRI so well and please give him a good appetite for good food! We trust You to heal him of this GVH and that he will be better for it all! And we thank You in advance for the good reports coming out of his 100 day studies. Your name is a strong tower; the righteous run into it and are safe - so thank You that Nolan and Nancy, Sam, Cooper, and Mackenzie are all safe in You. In Jesus' name, Amen. Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Friday, July 11, 2003 11:13 AM CDT I am new to your son's page and I will check back often. God Bless You. Love, Tracy Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)  Tracy and Katia - Friday, July 11, 2003 10:50 AM CDT Nancy - Finally back from vacation! Don't know how you can come back more tired after vacation! I'll bet you are really looking forward to having your family together again! I talked to Sam last night, and he told me you had decided to bring Cooper and Kenzie back after the wedding. I think that will be good for you all. It'll probably feel like a big slumber party! Have fun! Andrea <andi_bell@hotmail.com> Erie, CO 80516 - Friday, July 11, 2003 7:49 AM CDT Nancy, Just wanted to say a few more things that I neglected to say earlier. I just wanted you to know that you have been such an example and encouragement to me what it truly means to walk in faith. I'm convicted of how I get so "caught up" in the mundane of my life and the busyness of everything. You have truly learned how to pay attention to what's important, not what's urgent. I'm so proud of you. You have become such a woman of God and I'm so happy and privileged to call you a friend. Please forgive me for not calling, I don't have any excuses except I've let my busyness get the best of me. I love you and your family and am praying that God continues to work in your lives in mighty ways. Love, Cindy Cindy Scobee <cdscobee@msn.com> Scotch Plains, NJ 07076 - Thursday, July 10, 2003 6:43 PM CDT Dear Nancy and Nolan: Just checking in on you to see how things are going. I'm sorry to hear that your departure has been delayed and that you're feeling a little down! Please know that you guys are continually in our thoughts and prayers. I love the new picture on the website! You guys all look so good and wow have Kenzie and Cooper grown! I miss you and think of you often. May God continue to encourage and strengthen you. Love, The Scobee's Cindy Scobee <cdscobee@msn.com> Scotch Plains, NJ 07076 - Thursday, July 10, 2003 6:32 PM CDT Dear Family, Just stopping by to check in and say hello. I'm thinking about you! I hope Nolan's MRI and Spinal Tap went well. Wait a minute. That sounds so wrong. The tone was way too casual! After all, can a Spinal Tap actually go "well" ??? If so, well for who?!#@*!" Cause it's sure not well for our little Nolan! :o( I've lifted Nolan up in prayer throughout the day today. I pray that God holds him closely while the doctors poke and prod. I have to believe that Nolan is in God's arms each and every day -- whispering to him words of comfort and love. Talking about all the great plans he's got for us all! Give Nolan a kiss from me. Remind him how much I love him and how perfect I think he is! Sam and Nancy, hang in there. Keep up the great balancing act you're both doing with everything going on in your life! And Sam, have I told you lately how proud I am that you're my brother. What a great husband and father you are! And in the midst of everything, such a true and faithful man of God. That faith spills into our family and has truly changed us. Thank you for that. Love, Chelle The Colony, TX USA - Thursday, July 10, 2003 5:10 PM CDT Just stopping to say hi, hope things went well today! Hugs and love...... Elisabeth - Thursday, July 10, 2003 4:43 PM CDT Hoping all went smoothly with the sedation today and his results are all good. I'm sorry you have to stay a bit longer. I hope you are starting to eat a little bit Nolie! Let's all pray the GVH is cleared up soon and Nolie's appetite revs up. In my prayers! Love, Lisa Post <ltjpost@cox.net> - Thursday, July 10, 2003 3:07 PM CDT Nancy and Nolan, Hang in there, it still won't be long now. We are moving next week, so we will miss you when you and Nolan return. You'll have to talk Sam into bringing you to San Diego with him in September so that we can touch base. Hope things keep looking up! Kim <kanthony@arrowheadgrp.com> Broomfield, CO - Thursday, July 10, 2003 2:26 PM CDT Nolan, Nancy, and Stacy Want you to know you are always in my prayers and my thoughts. Stacy, I want to thank you for being there for Nancy and Sam they have such wonderful friends. I don't know what our familly would have done without you all there. Nancy give Nolan and extra hug and kiss from his Nana. And I will be praying for a good day as he has the MRi. Love you all Nana Lorene Davis - Thursday, July 10, 2003 5:10 AM CDT Nancy, Nolan and Stacey-Hey-I know I just hung up the phone,but I was so convicted to write you a quick note. Please forgive my "busy-ness" Nancy, that I of all people have not daily jotted you a note of encouragement. I know I speak with you on the phone but nothing is more uplifting then reading words from a friend. My heart hurts that you do not get to come home, but as Molly's dad said, if in the long run it helps to make the transition more smoothly-who can argue with a few more weeks.(easy for me to say right?)I am so thankful to the Lord for Marybeth, Beverley, and Stacey. Oh, what a true blessing from God friends are. It is simply amazing what a wonderful friend you are-You never cease to lift me up when I'm the one who was supposed to be doing that for you. It is also evident in the number of people that flock to be near you. You make friends, true friends where ever you go. What were you worried about those many years ago when Cindy left for New Jersey. Thank you my friend for being Jesus to me. You minister to me all the time. Thank you for your constant compassion, love and concern in the midst of your journey. Anyhow-give me dead air and you know I will fill it-Again, I'm sorry for not taking the time to drop you a line or two. Oh, we enjoyed having Sam here, like I said earlier. He and Ray were easy to spot from the choir loft-their shiny heads beeming at me. I teared up on the spot at how much we miss you. I missed you being with him. Love You!! Holly <hoddygAev1.net> katy, tx - Wednesday, July 9, 2003 6:25 PM CDT Hi Nolie, it's your Aunt Chelle :o) Hope this finds you feeling better today. Can't wait to hear how you did on all the evaluation tests... you just move along at your own pace and don't give them too much to work with!! They may try and tell your mommy and daddy you're a little "delayed" in some development areas, but we know the truth of it all don't we? *wink!wink!* You could run circles around those crazy doctors! I'm sad that I won't get to see you in the next couple of weeks, but you just work on getting stronger and healthier. You'll be home in CO before you know it! I love you and I'm thinking about you! XXOO! ((((HUGS)))) Love, Aunt Chelle The Colony, TX USA - Wednesday, July 9, 2003 4:12 PM CDT Word of God Speak Words and music by Bart Millard and Peter Kipley © 2002 Simpleville Music (ASCAP)/Songs from the Indigo Room/Wordspring Music (SESAC). Administered by Fun Attic Music. All rights reserved. Used by permission. I'm finding myself at a loss for words And the funny thing is it's OK The last thing I need is to be heard But to hear what You would say Word of God speak Would You pour down like rain Washing my eyes to see Your majesty To be still and know That You're in this place Please let me stay and rest In Your holiness Word of God speak I'm finding myself in the midst of You Beyond the music, beyond the noise All that I need is to be with You And in the quiet hear Your voice Word of God speak Would You pour down like rain Washing my eyes to see Your majesty To be still and know That You're in this place Please let me stay and rest In Your holiness Word of God speak Would You pour down like rain Washing my eyes to see Your majesty To be still and know That You're in this place Please let me stay and rest In Your holiness I'm finding myself at a loss for words And the funny thing is it’s OK Uncle Bubba <michael_r_davis@sbcglobal.net> Dallas, TX - Wednesday, July 9, 2003 3:20 PM CDT Hi, guys! So sorry it sounds like you'll be extending your "visit" (yeah, right) awhile longer... Try to be patient. The same thing happened to Molly a few times, and in the end, it was so worth it to stick around. She didn't have one single complication once we got home to Chicago, and that peace of mind is priceless. You're in the right place for Nolan. Try to hang in there! P.S. Thanks for the note about the WSJ article! You're so sweet! Love and hugs to all, Jenny Birmingham <www.missmollyb.com> - Wednesday, July 9, 2003 2:16 PM CDT Nancy, hope things are well. Hopefully Nolan is feeling a little better? Hugs and love to you....that was a really interersting article from the paper. Elisabeth - Wednesday, July 9, 2003 12:52 AM CDT I am so sorry to hear that your trip home has been delayed. I know how heartbreaking that is. We are praying for Nolan's GVH to resolve. Don't worry, Nolan will be eating real cheesburgers in no time! Love, Carrie Carrie, Patrick, & Jordan Horton <iteach2u@hotmail.com> - Wednesday, July 9, 2003 10:58 AM CDT Hey! I remember steroid mood swings... But I'm glad things are going well. I so needed to read some good news with all that's going on right now. I hate your visit is being extended but better safe than sorry. I'm praying for you and thinking of you every day... LOVE, Shawn & ^REESE^ <shawn.coble@wachovia.com> - Wednesday, July 9, 2003 8:55 AM CDT OOPS, Sorry it was June 2nd on Noah's site. I do hope your plans come together and Nolan soon feels better. Hang in there. Darla <D6318_@hotmail.com> Illinois - Tuesday, July 8, 2003 6:12 PM CDT Dear Sam, Nancy and Nolan, I'm sorry to hear that Nolan's stay in NC will be extended, but you're right - you want to make sure he's in the best shape possible before going home. Sounds like this week will be extremely busy for you - hang in there :o) Nolan, you hang tough my little one. Your Aunt Chelle is thinking about you and whispering your name to heaven each day. You won't reach a point where all of this medical stuff is done and over, but you will reach a point where it will get easier. I love you. I'll be in touch this afternoon. Love, Chelle The Colony, TX USA - Tuesday, July 8, 2003 10:48 AM CDT Sam & Nancy, So sorry plans are taking longer than you thought. Please watch out for that FK506. I have been reading some of the pages from the other families and it seems FK506 is causing quite a few problems for them. Especially read Noah Prichard's page. I believe it was a June 4(?) entry that his father made that is really dramatic. Noah was taken to PICU with problems the doctors were convinced of although they had no tests confirming. Noah's father did some tracing of the side effects of Noah's medications and found Noah's problems started about the same time as the FK506. Drs. would not budge from their thoughts, so Daddy made the decision and told the on-duty doctor one night they were going to quit the FK506. There was a dramatic turn-around. It might not cause problems in all the kids in general, but please watch out for it. My sons have never had to have it (yet), so far they are very slow progression in their MPSVI, but I would be VERY cautious about using the FK506 before trying something else. Noah's site (you probably know) is caringbridge.org/hi/noah Darla <D6318_@hotmail.com> Illinois - Tuesday, July 8, 2003 8:58 AM CDT Nancy Hey chicky keep your chin up!! I feel that things are going to get better soon. And that you will be going home sooner than they think. Don't know if I can go home without you. At least your kids will be coming soon, so you can be with your family. Love you!! Peggy <caringbridge.org/ia/jeremiah> Davenport, IA USA - Tuesday, July 8, 2003 6:51 AM CDT Nancy, I am so so sorry there has been a delay and that Nolan is not feeling well and having some problems with his meds.....hope and pray his stomach issues resolve quickly and that the donor cells behave. Nancy, can't even begin to imagine how you feel, wish I knew the right thing to say or do, but please know that you all are in my thoughts and prayers...Gods Blessing with healing strength, peace and love. Love you guys. Elisabeth - Tuesday, July 8, 2003 3:17 AM CDT Our prayers are with you and Nolan. Hope all goes well. We'll be thinking of you this week and keep checking on him. Jennifer Awrey caringbridge.com/me/morgan <ammawrey@cableaz.com> Mesa, AZ - Tuesday, July 8, 2003 0:12 AM CDT Hi, to each of you! So sorry to hear of the possible delay in returning home to Colo. But, I know you will continue trusting God for His will to be done. Nolan, keep fighting with all your strength and might. Continue to show us more miracles from God through your life. You are a fighter and you have two very courageous and faithful parents who are trusting God for your complete healing. Big brother Cooper and sister Mackenzie are anxiously waiting for you at home. You can do it, big guy! Love to you all, Winona Foley Garland, TX USA - Monday, July 7, 2003 11:43 PM CDT Hello to Nancy and Nolan and Mackenzie and Sam and Cooper!! You have been in my thoughts and prayers. Keep up the hard work. It sounds like you have a wonderful support system. Tell Mackenzie, Jessica from Alphabet Soup says Hi! Aleesha Nieusma <aleesha@nieusma.com> Superior , CO USA - Monday, July 7, 2003 10:33 PM CDT NOLAN! One more week or so, baby, and you are OUTTA-THERE! Man, you should have seen us on the 4th of July. It was spectacular, it was awesome, it was EPIC! Along with all the other party poppers and smoke balls, I got us a MONSTER smoke signal! It was as long as your arm and as big around as your wrist, and it poured out thick white smoke for TWO MINUTES SOLID. Naturally, I set it off right out in front of the house, in the street - as soon as it got going, the wind shifted and filled the ENTIRE HOUSE with thick white smoke! Man, it was unbelievable. After it burned about halfway down, the breeze shifted, and then it filled up the NEIGHBOR's house with smoke! The Neighbor Momma came rattling down the stairs, out in the yard, wondering what on EARTH was going on, and the girls and I were staggering around howling with laughter. Oh, man - it was PRICELESS!!! Whoo - that smoke stuff REEKS, too! I'm telling you, we covered about half a block with the most eye-watering, foul stench you can imagine. Our cat must have washed herself 847 times that afternoon - of course, she was pressed against the front window screen to watch the show, and she really got a snootfull. WOW! I haven't had that much fun in AGES, man - that was simply stunning. The girls all thought it was the slickest thing they'd seen in a while, but Momma was somewhat less amused - she came up the stairs from the basement muttering and shaking her head, complaining to the cat that I was As Bad As The Kids. Whoo-Hoo! The stink has pretty much died down by now, though. We went over to E.B. Rains Park (across the Interstate) yesterday, paddle-boating in the pond and watching a wedding that happened to take place while we were eating lunch. I'm not making this stuff up - you see how the weird stuff seems to just follow me around? They had a couple of bagpipers there to play the music (I kid you not!), and it was actually pretty good. I've always thought that bagpipe music sounds like a cat caught in a threshing machine, but these two managed to bleat out a pretty decent rendition of "Here Comes The Bride." There were about nine zillion little fish about the size of your hand in the pond, but despite extensive effort with a piece of decorative netting we found in the trash, we couldn't catch a one. I Have A Plan, though - with a bigger net and three or four paddleboats working together, we could TRAWL that pond and catch THOUSANDS of fish! Dunno what we'd do with them, since it would take forty or so fillets to make a small sandwich, but it would be WILD, don't you think? Whooo-eee! You gotta come HOME, man; there are all SORTS of weird and bizarre situations to get into out here. Oh - and tell your Momma that if we ever manage to fill the nets, we'll be sure and set aside 300 or so little fish for her. They might make a decent soup, or gumbo, or kebabs or something.... Ol' Weird Philippe Broomfield, CO 80020 - Monday, July 7, 2003 3:24 PM CDT Thanks for including us in the Independence Day activities at your place. The food and the company were really great! It's been fun getting to spend a little more time with you guys lately...dinner at Manchester's was fun last night too. We're sure going to miss you when you guys get to go back to Colorado. Talk to you soon. Love, The Mitchems Princess Madi's Family <mitchem@wwdb.org www.caringbridge.org/nc/princessmadison> Lake Elsinore, CA - Monday, July 7, 2003 12:14 AM CDT Nolan remains in my thoughts and prayers. Hope the tummy issues are working themselves out and that you all had a wonderful 4th! Kelly Waddell <http://www.geocities.com/calebwaddell> Southaven, MS USA - Monday, July 7, 2003 10:59 AM CDT I think of you and pray for you daily. I work with Edee. Hang in there! Valerie Mobley <valerie.mobley@dhs.state.tx.us> Abilene, TX USA - Monday, July 7, 2003 8:35 AM CDT Hey guys.....hope the reason that you havent upated is because you are so busy having so much fun together! Hope Nolan is doing fine and you are enjoying your time together....days, hours and minutes are getting closer to being all together! YEAH Elisabeth - Sunday, July 6, 2003 9:02 PM CDT Hello to all of you! I've been on vacation, but have caught up with all your entries. Glad to learn that Nolan is feeling better after the "scare". Just keep holding on! Hope you had a great 4th! I was unable to attend the big Garland 4th Festival, but could hear and see the fireworks from my house. May God continue to bless all of you and may He see fit for you to return to your home as planned. I receive inspiration from each of your journal entries. You are all in my daily prayers. Love to all, Winona Foley Garland, TX USA - Sunday, July 6, 2003 5:35 PM CDT Hello, Nolan and family! We sure hope your tummy feels better soon, Nolan! Sounds like you are having fun with your dad there (and Mom's getting a good break, too!) We're thinking of you always! Take care, Jenny Birmingham <www.missmollyb.com> - Saturday, July 5, 2003 11:09 PM CDT Hi Nolan I am Jessica an online prayer warrior for Alex. Alex is going to your house tonight for dinner and I hear Madi is going too. I met Madi through Alex and have been praying for her too. I hope you guys have alot of fun tonight. If you want to visit my site and sign my guestbook you may. www.geocities.com/barbiegirljessica2003 love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> las vegas, nv usa - Saturday, July 5, 2003 6:03 PM CDT Dear Sam, Nancy and Nolan, Sam, glad to hear you arrived in NC safely! Hope you guys had a great July 4th - we were thinking about each of you! Next year we will all celebrate together :-) I’m counting down the months! Nolan, I hope you're feeling well this weekend and you're tummy is doing better. Just wait til you get older and start eating some normal stuff – try some of your daddy’s beef tenderloin and yummy potato salad ... you’ll never go back to Ensure! :o) Nancy, I hope you were able to get out with the girls and do a little shopping. So did your 4th feel semi "normal?" We love you and we're missing you! Take care of each other, have a good weekend and I'll talk with you soon. Give Nolan a kiss from Hunter and Chase! :-) Love, Chelle The Colony, TX USA - Saturday, July 5, 2003 10:24 AM CDT I hadn't signed the guest book in a while but I have checked in everyday! I am glad you are going to have a "normal" 4th of July, what fun you will have! Tenderloin sounds pretty good, what time is supper! :) Tammy Rajabi Katy, TX 77450 - Friday, July 4, 2003 11:02 AM CDT Nancy, I just love your upbeat update!!! Love, Lisa Post <ltjpost@cox.net> - Thursday, July 3, 2003 6:46 PM CDT Glad to hear the white count is down where it should be. We'll be saying extra prayers that his tummy issues get settled and your 100 day studies reflect only good things. You all continue to be in our prayers! PS-the cook-out sounds yummy! Happy 4th! Randy, Robin, Jake & Grace Boger Lewisville, NC - Thursday, July 3, 2003 10:30 AM CDT I am a friend of Lorene's and just wanted to let you know that I pray for Nolan daily. God is a Miracle working and loving God and I am so glad that Nolan is doing better and will be going home soon. Way to go Nolan!!!. Praise God!!! Charlotte Lackey <cllackey@garlandisd.net> Garland, Tx USA - Thursday, July 3, 2003 9:00 AM CDT Just checking in again on Nolan - for some reason my postings haven't shown up in the guestbook lately. Praying that he will be plenty well to go home in two weeks - and that nothing will hinder that at all! "Delight yourself in the Lord and He will give you the desires of your heart." Psalm 37:4 Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Thursday, July 3, 2003 0:01 AM CDT Hi Nancy and Nolan....we are about to be away for a while and I wanted to check in with you one last time before we go...I'll be praying for your continued recovery, Nolan, and for your strength, patience and endurance these next few crucial weeks, Nancy, as you can see light at the end of the tunnel! Enjoy your time with Sam these next few days...I'll miss keeping up with you guys daily, but will definitely keep you close in my thoughts and prayers!!! Love, April April Kreger <kreger90@houston.rr.com> Katy, TX USA - Wednesday, July 2, 2003 5:00 PM CDT Dear Nancy and Nolan, So glad Nolan is better - keep it up! Sam called this morning from the airport and talked to Cooper and Mackenzie. He was so excited about going. I know he has missed you both so much. He is very lonely. Hopefully not much longer. Nolan, start eating and gaining weight. Nancy, just hang in there and know how much you are loved and how many prayers are being said every minute for all of you. Look forward to seeing you both soon. Once again, Marybeth, thank you so much for being there. I hope one day to be able to thank you in person. It means a great deal to our family. God bless and keep you all. Love and kisses from all of us. Grammy, Grandpa, Cooper and Mackenzie Ron and Edith Heilhecker, Cooper and Mackenzie Ramsey Abilene, TX USA - Wednesday, July 2, 2003 1:17 PM CDT Hi there NC Ramsey clan Beverley and I are in Calgary, Alberta visiting our children and grand children. Cirila knows how to get what ever a two year old can handle just by starting the phrase with "papa p'ease". I melt and if I could get the moon down here I would give her that too. Kirstin is the quietest little two and a half month old. She is like her daddy was. This is my first time to see her and she is perfect. We are praying and praying for that sweet little Nolan. Maybe if everyone reads this today and y'all would pray very hard for Nolan we would see that little guy get over this little flu thing that is going on. Maybe let's pray like we did the day he had his transplant!! We love you all so much and can hardly wait to get back to Lafayette and greet him. Remember the offer is still open to drive the car home. Pastor Dwayne and Beverley - Wednesday, July 2, 2003 11:44 AM CDT Dear Nancy, Just checking in. Glad to hear Nolan is feeling a little better. I thought about him all night last night. I know Sam is eager to get there (and I bet you can't wait!!). Take care of yourself and kiss Nolan for me. Sending lots of love and prayers your way! Also, thank you Marybeth, for your love and support during this time. One day soon I'll be able to tell you in person how much our family appreciates you! "This is the day the Lord has made. We will rejoice and be glad in it." [Psalm 118:24] Father, I thank you for keeping Nolan safe through last night and for the beginning of another day. "...I have learned the secret of being content in any and every situation... I can do everything through Him who gives me strength." [Philippians 4:12-13] Love, Chelle The Colony, TX USA - Wednesday, July 2, 2003 10:50 AM CDT Glad to hear Nolan is better and not throwing up......hopefully, the bug has passed and will not present any problems. Nancy, your faith and courage is awesome and so inspiring...reading what you go through and seeing some of it when I visited-----I know there are times when it can get the best of you, but it is not that often, your soul and spirit are so uplifted and God filled. Again, I will tell you that you, Nolan and your family have had such an influence in my life. You are surely God's Angels~~ Elisabeth va - Wednesday, July 2, 2003 8:27 AM CDT Nancy: I check in on you often -- but rarely sign in. Please know that prayers are with you and your family daily. Have a safe trip home and enjoy the family. Much love and many prayers, Wendy Ruth Paxton Wendy Ruth Paxton <wendy.paxton@carolinashealthcare.org> Rock Hill, SC - Wednesday, July 2, 2003 7:32 AM CDT Hey Nolan and Nancy, I just spoke with Sam and he said that you two are scheduled to come home the weekend Amy and I get married. We are so excited that you will be here to celebrate with the whole family. More importantly, it is truly a blessing that Nolan gets to go home and be with his family. Amy and I are praying that Nolan continues to get healther everyday. Also, when we saw Cooper and Kenzie a couple of weeks ago they were just beside themselves with anticaption of being in our wedding. I hope and pray that you are here to share in the moment with us. We love you both with all our hearts. John & Amy John Heilhecker <jheilhecker@sbcglobal.net> Arlington, TX USA - Tuesday, July 1, 2003 9:49 PM CDT Praying that things will turn around quickly and Nolan will be on the mend. Also, praying that the purposed date of going home will be met. May you all feel the Lord walking beside you and giving you comfort! Linda Burfield, Edee's friend in Abilene Linda Burfield Abilene, TX USA - Tuesday, July 1, 2003 8:47 PM CDT Dear Nancy and Nolan, Sorry to hear that you did not have a good day. We tried to call last night and could not get you. Now we know why. Nolan, just hang in there and feel better fast. Hopefully the little bug will go away. Nancy, don't get too discouraged (you won't, you are a very strong person). We are all praying for you. Cooper and Mackenzie send all their love and lots of hugs and kisses. We will check on you later today or tonight. We love you - Grammy and Grandpa. Ron & Edith Heilhecker Abilene, TX USA - Tuesday, July 1, 2003 1:16 PM CDT We are praying for you Nolan! Cathy Peters <www.caringbridge.org/canada/isobel> - Tuesday, July 1, 2003 12:52 AM CDT Hi Nancy and Nolan, Nolan...I am keeping you in my prayers. My little girl, Addie (she's freinds with Hunter) sends her blessings at night when we are praying. We pray the little bug in you leaves quickly and you feel better soon. Nancy - I will continue to keep you (and your family) in my prayers. It is not easy to be the caregiver - I understand. All you can do is keep praying and never give up! Shelley tells me how strong you have been during this difficult time. God is with you and I believe he also carries us during these trying times. You are in my prayers. Stay strong. I hope one day to meet you and your family during a visit to my dear friend Shelley (once they move to Colorado). :) Take care and God Bless... Tammy Tammy Howell Plano, TX - Tuesday, July 1, 2003 9:39 AM CDT Dear Nolan, Well... sounds like Monday was NOT a better day for you :-( We're sorry that you're not feeling better. Hopefully this is just a little bug that will soon pass. You've been through a lot and your little body must get so tired. But your spirit is STRONG!! Just hang in there! We will check in on you later today. We love you and we're thinking about you. XXOO! Love, Aunt Chelle & Uncle Shawn The Colony, TX USA - Tuesday, July 1, 2003 9:31 AM CDT Nancy, Oh I will pray so hard that nolan gets better. He has been doing so good and I want you all to go home sooo bad. I will pray extra hard that this is nothing bad and that it can be resolved quickly. God Bless!! Stephanie Conner Cana, Va - Tuesday, July 1, 2003 5:26 AM CDT Nolan, We are so very, very sorry to hear that you have not been feeling well, and we will certainly say extra prayers that you will start to feel better soon. We hope that this is nothing more than just a little stomach bug that will be of no harm and will pass quickly so that you can continue as planned to go home in a few weeks. Hang in there buddy, you are doing such a great job. God bless, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Monday, June 30, 2003 11:18 PM CDT Hope Nolan is feeling better today. Continued prayers for your family. Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Monday, June 30, 2003 8:20 PM CDT Nancy, Just dropping in to say hello :o) I've been thinking about you and Nolan. Hope this finds you both doing better. Cooper and Kenzie are doing good. We all enjoyed our visit together this past weekend. Mackenzie is such the little "mother" with Chase. Doting over him and comparing him to Nolan. Cooper is Cooper -- a ball of energy and a wild streak of independence! (he still gets very frustrated with those video games, but Uncle Shawn cut him some slack and let him win a few!). They both spoke quite a bit about Nolan and about Duke Hospital. They never missed a meal/bedtime prayer without mentioning his name. We talked about our move to Colorado. Mackenzie has informed me about a home in your neighborhood that was available for purchase and Cooper has given me the details on a preschool (Alphabet Soup) for Hunter ...smile.... much like their mommy, they are avid salesmen for the Colorado area! No new news on our home as of yet, but thanks again for the promo! Take care of yourself and give Nolan a kiss from his Aunt Chelle. Don't worry about Cooper and Kenzie. They are doing just fine - longing for the family to be together again - but staying busy enough at "Camp Grammy" to not get too down about it! Soon your lives will change again and you will be back at home in Erie, CO. Learning a new way to live with little Nolan home. I know you long for those days. Stay strong Nancy and keep looking ahead! "It isn't the load that weighs us down - it's the way we carry it." Father, thank You that You carry my burdens for me if I will give them to You. Give me the courage today to lay them at Your feet - and help me to not pick them up again tomorrow! Love, Chelle The Colony, TX USA - Monday, June 30, 2003 4:36 PM CDT Little Nolie, I'm so sorry you had a tough day last Friday. You hang in there buddy - kick that "bug" out of your system! You've got places to go, people to see!! I'm praying for you, loving you and counting down the days until I see you again. I hope Monday has been a better day for you. You've been on my mind and I carry you close in my heart. I love you! XXOO! Aunt Chelle The Colony, TX USA - Monday, June 30, 2003 3:57 PM CDT Nolan, Way to go honey, standing with your walker!! What a great accomplishment for you. Like your Mommy said you may be walking and running soon. That will be great. I pray that your elevated white count is a virus--(not just a virus) and that your little body will soon be rid of it before fevers start. All little things become big things when you are post transplant don't they? Happy Moments--praise God. Difficult Moments--seek God. Quiet Moments--worship God. Painful Moments--trust God. EVERY MOMENT--THANK GOD. Have a blessed day in the Lord. The God who created light sent His Son to brighten our lives!! Matthew 17:2 "His face shone like the sun, and His clothes became as white as the light." Love in Christ, Jerrri and Kaden <pakrfan1@msn.com> Sioux Falls, SD USA - Monday, June 30, 2003 7:47 AM CDT Oh, Sweet Nolie! I hope and pray that you have gotten better over the weekend and had a simple touch of that virus!!!! We are all looking forward to day 100 with you! Love, Lisa Post <ltjpost@cox.net> - Sunday, June 29, 2003 8:41 PM CDT Hey all, Hope Nolan is doing well today......Nancy, I know it is so painful for you to hear of another death------you all are so in my deepest thoughts and prayers...........how many days and hours are we down to as of today????? YEAH-- so glad you will go home to everyone! God Bless Elisabeth va - Sunday, June 29, 2003 1:57 PM CDT Just dropping in to wish you all well and hope that you have a safe and healthy 4th of July. Nolan is in our thoughts and prayers.  Angel Chris and all your friends at Smile Quilts chrisrusso_@hotmail.com - Saturday, June 28, 2003 11:58 PM CDT Hi Nancy and Nolan! Just the Stephenson's here in Colorado wanting you to know we are always thinking of you and praying for you. Much love, Gerry, Vera, Kalina and Nicole Vera Stephenson <vera@reverenceacademyofdance.com> Louisville, CO US - Saturday, June 28, 2003 8:55 PM CDT Hello, Nancy, Nolan, and Marybeth. I'm sorry to hear that Nolan isn't feeling well - sometimes the body just hates all those yucky things that doctors put into it and tries to get rid of it! It happened to me when I was sick and also many of the Caring Bridge kids I pray for. So don't get worried about losing your 100-day sprint; you'll make it and look back with awe at the goodness of the Lord! When I get afraid, I try to remember Job, who said, "All that I feared has come upon me." And you see what happened to him! Fear invites the enemy to test us in those areas. That's why God tells us 490 times to fear not! So fight fear with faith in the Lord's goodness and you will be home in record time! "The name of the Lord is a strong tower; the righteous run into it and are safe." Proverbs 18:10 "Lord, we thank You that we have confidence in You that Nolan stays healthy and well! Thank You that Your name is the safest place in heaven or earth - we are truly protected in Your glorious name. Thank You that Your name Jesus means 'one who saves,' and thank You that You are saving Nolan from Hurlers in that amazing, precious name!! Amen and amen!" Luke 18:1! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Saturday, June 28, 2003 7:10 PM CDT Nolan is such a cutie! I am sorry he hasn't been feeling so great, I sure hope you all get to return home on schedule. God Bless! (I have an 11 yr. old son dx. with MPS II) Kris Klenke <kris@mpssociety.org> Worden, IL - Saturday, June 28, 2003 6:28 AM CDT Good Morning!! Great to hear things are still going good. I am sorry though that Nolan feels bad. I will be praying that he does have a bug only and that it is nothing major. I hope that you all have a wonderful weekend and God Bless!! My thoughts and prayers always. Stephanie Conner Cana, Va - Saturday, June 28, 2003 5:10 AM CDT Hi Nolan and Nancy...just wanted to check in and let you know that we are still thinking of you daily and praying for you...it's such a bittersweet time for you, I'm sure, as you are holding your breath for Nolan to continue to do great, but you are surrounded by others in your same position losing their little ones...God's plan can be so hard to understand sometimes, but I know that His way is always so much better than we ever imagine it can be if we can just keep our eyes looking toward Him (I think I am encouraging myself to remember this as much as I am you!!!)....we just finished VBS at FBCK today, and not a day went by without me thinking about you guys and saying many prayers for Nolan as I sang along at assembly-time with Holly up on stage...I can't wait until the day (which is very soon, I hope!!!) that I read your first journal entry from Colorado...what a wonderful day for your whole family that will be! Keep up the hard work, Nolan! We are so proud of your hard-won progress!!! Love, April April Kreger <kreger90@houston.rr.com> Katy, TX USA - Friday, June 27, 2003 6:15 PM CDT Way to go NOLAN!!!! I am so happy to hear that you are going to be going home soon. You truely are making great progress. What a blessing. Know that I continue to think of you. Tiffany Giaccone PICU, - Friday, June 27, 2003 11:10 AM CDT Way to go Nolan!!! Yea you get to go home!!! Keep up the good work. You are doing so great! I am glad that you get to go home soon. Hope that you all have a good weekend and God Bless!! Stephanie Conner Cana, Va - Friday, June 27, 2003 5:33 AM CDT Hello, I am so happy that Nolan is doing so well and that you get to go home. I will continue to check in to see how he is doing. Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Friday, June 27, 2003 1:02 AM CDT WAY TO GO NOLAN, I can't wait to see you when you stop in Dallas on your way home, I should still be here before my move. Keep getting better, praying for you continually my dear nephew Uncle Bubba <michael_r_davis@sbcglobal.net> Dallas, TX USA - Friday, June 27, 2003 0:38 AM CDT Hello little buddy, How are you today? WOW you get to fly way to Texas for your first wedding already. What a lucky boy!! Praises to our God and King for the miracle of healing for you, honey. You are truly blessed to have such a wonderful family to love you to pieces. True success lies along the way and path of God!! Thank You Great Physician. Jerri McKinley and Kaden Mellema <pakrfan1@msn.com> Sioux Falls, SD USA - Thursday, June 26, 2003 10:14 PM CDT Ramsey family, Just a short note to let you know that we think of you daily. I check for updates each day when I get in from work. God is so richly blessing your family - what wonderful news that you will all be together is such a short time. We continue to lift your family up in our prayers. Maybe it won't be too long before we see you in Garland. Have a safe trip home. Nancy, you and Sam write such wonderful, strong words of faith - you both have blessed me so. Barbara Marecle Garland, TX - Thursday, June 26, 2003 6:35 PM CDT Congrats on the great news about going home but even more congrats to Nolan for weathering all he has been through so well. We pray that nothing prevents you from being at that wedding and getting home on the 20th - HAPPY DAY. Nancy & Ed Aman <nancyaman@charter.net> Sanford, NC - Thursday, June 26, 2003 6:28 AM CDT Hey guys! I am so glad to hear the great news of you guys going home-home. Yeah!!! I saw your updated pictures and Nolan looks great. I hope everything continues to go smoothly for all of you. I swear Nolan looks more and more like Sam!! I miss you all! XOXO Jenn E <medmisten@mindspring.com> Durham, NC - Thursday, June 26, 2003 3:47 AM CDT Nancy, Yeah! Nolan's liver is going down! That is great news! I am also happy to hear that you will be able to go home soon! I will be praying that all goes as planned and there are no delays in your plans to return home! Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Wednesday, June 25, 2003 10:43 PM CDT Just want you to know that our family is praying for yours. I know of you from Kyndal Bass. God Bless you. Karl and Jena Weisheit, LeAnne, K.J., Jonathan, and Melanie Jena Weisheit <jenaweisheit@aol.com> Frisco, Tx USA - Wednesday, June 25, 2003 9:36 PM CDT Good to see Nolan is going home:) Will keep him in my prayers. By the way he is so cute!!! On a sad note you mentinoed Hermes on your entery not sure if your aware yet, but he did pass away, just wanted to mention it maybe you would like to send them a little note. My heart truly aches for the family to go to Duke full of hope and go home childless is truly heartbreaking. God bless you & your family Sally Torres <sally_torres@lusknet.com> anaheim, ca usa - Wednesday, June 25, 2003 5:52 PM CDT Nancy and Nolan, hope all is well and that you had a good day..........and are virus free! Hugs Elisabeth - Wednesday, June 25, 2003 5:42 PM CDT Lord, we ask in Jesus mighty name that Nolan will be completely well and free from the runny nose and other symtoms of whatever this is. You don't diagnose - You heal! - so we thank You for healing Nolan no matter what this thing is, so that he can really, truly go home on the 100th day (or thereabouts). Thank You for shining on the Ramseys and giving them such a good outcome with the procedures and that Nolan has weathered every scare with strength and grace! Thank You, too, that Cooper and Mackenzie are enjoying themselves and feeling much better. Please bring this whole family back together and teach them to not be afraid of anything at all ever! Thank You, Lord, for hearing every word and answering according to Your will, which is that little boys grow up to be big men with hearts on fire for You! In Jesus' name, Amen! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Tuesday, June 24, 2003 8:23 PM CDT Dear Nancy and Nolan, I will repeat what Chelle said - 19 days - wow! Can hardly believe it. I think everyone is breathing a little easier these days. Nolan, grandpa and I can hardly wait to hold you again and just keep holding you. It has been such a long time. The new pictures are wonderful!! Is that a beautiful boy or what? Nolan, how very proud I am to say that is my grandson! I think if you want to see the face of Jesus all you have to do is look at that beautiful smile and face and into those eyes. Cooper, Mackenzie and Hunter said to send you love and kisses. They are doing fine and talk about both of you all the time. Hunter says his Nolan prayer every night (that is pretty good for a 3 year old). Grandpa, Grammy and Aunt Rhonda are staying busy these days, but having a great time. Nolan, sure will be happy when you can come stay with us. Just wanted to say hi and let you know how very much we love you and miss you. Nancy, hang in there and know it won't be much longer. Marybeth - thanks for being there. Means a great deal to our family. Sam, I know you will read this also. I know you are lonely, but hang in there - your family will be together again soon. We love you, miss you and are praying for you all. God bless you. Love - Grammy P.S. Wanted to say thank you from our entire family to all of you out there who have been praying and giving Sam, Nancy and Nolan your support. You will never know how much this means to us as parents, grandparents, sisters and brother. All we can say is God bless each and everyone of you. edee heilhecker <edee.heilhecker@dhs.st.tx.us> abilene, TX USA - Tuesday, June 24, 2003 4:51 PM CDT Dear Family, God is good! He's blessed us with beautiful babies. What an honor that we were entrusted with their care!! This is a long entry, but thought you'd enjoy. You may have seen it, but it's a nice reminder to us all :o) ****** He slips into this world, and into my arms, placed there by heaven. He is straight from God. An indescribable gift. As I look upon him; peace and purity fill the air around him. Through joyful tears I whisper in his ear, "We are glad you are here. We waited so long to see you." He opens his eyes and I am transformed--a timeless moment filled with the infinity of what life is. In his eyes I see total recognition, unconditional love and complete trust. I am a mother. In that instant I feel, and in in my heart I know, everything I need to know to guide him. Lying on the bed, he sleeps between his daddy and me. We count the toes and fingers and marvel at the perfection in such a tiny form. We look for ways he looks like us, and ways he is uniquely himself. We have nothing to say but our hearts and minds are full of thoughts--of hopes and dreams for him, of who he might be, of what gifts he brings with him and how he might touch the world. Just looking at him and feeling the love and sweetness he brings, it seems the stress and weight of the world are lifted from us, and what is important and true in the world becomes apparent--as being in the presence of a great, wise sage. It's hard to close our eyes to sleep. As the days and years pass, we are awed at the transformation of who he is becoming. The first smile, the first word, the first step--all according to plan, yet in his own time and special way. He teaches us how to play again; to slow down and see the world again. To rediscover the things we used to see, and know. It is clear there is much he remembers, feels and sees that we no longer can, and maybe never could. Time will fly; suddenly he will be grown, a young adult, ready to soar into the world and give what he came here for. Letting go will be wrenching, and yet we know that he is not ours to keep. He came to us to teach us lessons, to give us joy, to make us whole and connect us to God. [by Jeanette Lisefski] Love, Chelle The Colony, TX USA - Tuesday, June 24, 2003 3:26 PM CDT Nineteen days and counting! Wooo-Whooo! I've been holding my breath for MONTHS! I pray Nolan gets to go home at the 100 day mark. First priority though is that his little body is healthy enough to go home. If for some reason he has to stay past that 100 days - don't fret Nancy. God is taking care of everything. It's all in His time and His time is perfect! (I have mentioned to God that while I respect and appreciate his "scheduled plan" I sure wish he would speed a few things up a bit. He hasn't responded yet. I'm sure he's very busy and will get back to me real soon. Smile.) I just wanted to drop in and say hi. Let you know that you, Sam and the kids stay on my mind and in my heart. Shawn, Chase and I will be going to Abilene to pick up Hunter this weekend. I'm looking forward to seeing Cooper and Mackenzie. I'll pass along lots of extra hugs and kisses to the kids from you, Sam and Nolie! I love you and I'll talk with you soon. * How does the tea taste? Anything like the true Tazo Chai?? :o) Love, Chelle The Colony, TX USA - Tuesday, June 24, 2003 2:17 PM CDT Dear Nolan, Don't you go getting sick on us, give mommy a big hug from me and she'll tell you how much I love you. Miss Beverley <bevehope@msn.com> - Tuesday, June 24, 2003 8:53 AM CDT Hi Nancy and Nolan, Just got back from our trip and could not go to bed without checking on you guys...I lost the paper with your number so I could not call again.........glad to read nothing more came of that temp!! It was SO wonderful to see you guys....and don't you fret...you have much more important things to talk about than me any day! I loved our visit and there are no words to describe little Nolan.......it was so great to see how good he was doing--especially how happy he is and that dancing to the music...he is TOO cute! He really is a doll........Praying for that 100 day release and a wonderful future.......God's blessings for you all.. Elisabeth va - Tuesday, June 24, 2003 0:29 AM CDT NOLAN! Hey, baby! How 'ya DOING, man? Your dad did a pretty good job with the Praise Team on Sunday, singing some old-time southern Gospel with us. We're looking forward to having you back out here at practice and church with us, though - I miss your smiles and giggles. I hear you're standing up and moving around a lot better - man, you've got to get WALKING. Trust me - there is no end to the weird and interesting stuff you can get into by walking around. The world is a strange and interesting place, but it helps a lot if you're on your feet. You can move faster, too - hoo, boy, you'll lead your momma on a merry chase, I bet. Besides, I can't wait to see that "Nolan Strut" - man, we'll dig up some fedoras and dark shades, and we'll be SOMETHING ELSE! Everybody will just fall about the place, they'll be writing letters to the Editor, and the whole bit. When you step out with yo' stylish self, older people will cluck their tongues and say things like "Something Must Be Done!" I can't wait - it'll be GRAND! Man, I'm so excited I can barely contain myself. Another month or so, and you'll be making a break for Colorado, coming back home to a hero's welcome. We'll have to pin medals on you, your momma, your dad, and everybody else! Keep cool, hang in there, and keep swinging - you're winning! *YOW*! Ol' Weird Philippe Broomfield, CO USA - Monday, June 23, 2003 1:45 PM CDT Good morning Nancy! Cool - the guestbook is up and running... something flaky was going on with it all day Sunday and I wasn't able to make an entry. Glad that it's working now. Hope this finds you and Nolan breezing through Monday morning. I'm sure the days of the week must run together for you! I talked to Sam last night. He sounded good, but I could hear the loneliness in his voice. I know the family still has a long road ahead even after Nolan goes home, but I'll be so glad when you can all be "together" again -- like a normal family unit (but then was the family ever truly "normal?"...smile...). Things are fine here. We didn't hear from the prospective buyer yesterday. Not sure if that's good or bad. Buying a home is a big decision - I just have to be patient and remind myself it takes time. By the way, thank you for your "promo" of our home in the journal entry -- you're so funny! ... I miss you. Give Nolan a kiss from his Aunt Chelle. I love you and I'm thinking about you. I'll talk with you again soon. "Great is his faithfulness; his lovingkindness begins afresh each day." [Lamentations 3:23] Love, Chelle The Colony, TX USA - Monday, June 23, 2003 10:14 AM CDT Hi Nancy and Nolan!! I'm glad you are feeling better buddy! Keep up the good work. You are in my prayers!! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson La Verne, CA - Monday, June 23, 2003 9:59 AM CDT Good Morning Nancy!! I am so glad to hear that Nolan is doing so good. That is great to hear. I pray everyday for you both. Nolan, you keep up the good work buddy. Keep on fighting. I hope that you have a good week Nancy and as always, praying for ya! God Bless you all! Stephanie Conner Cana, Va - Monday, June 23, 2003 6:13 AM CDT Thinking about you both, and praying for yous always. Nolan give Mommy a big hug from me. I love you both. Beverley <bevehope@msn.com> - Sunday, June 22, 2003 10:35 PM CDT GREETINGS from Room 203 at OUR FIVE STAR Hotel!! (NOT! maybe -5 is more like!) I just wanted to stop by, since I have more than a minute, to say HI. I was sitting here listening the Wayne Watson's CD "Living Room" and I thought of YOU! I so wish we where able to spend more time together, other than our "chat" in the Fish Tank room. However, there's a bond that doesn't require words. Isn't that the wonderful part of being a Christain! Nancy, I can't wait to stand next to you in heaven as we praise the Lord together for his Grace and Mercy that he has given us during these trying times. We serve one AWESOME God! Cheering you and Nolan HOME! In Christ, Ellen Andrew's Mom and Cheerleader and advocate and voice and prayer warrior and Nurse and ..... I am confident of this, that he who began a good work in you will carry it on to completion until the day of Christ Jesus" Philippians 1:6 www.caringbridge.org/page/andrewshope (MPSIII) <AHope4Drew@aol.com> STILL at DUKE!!! , - Saturday, June 21, 2003 12:11 AM CDT Stopping by to let you know that although I don't sign in a whole lot, you are always in my thoughts and prayers. Blessings to you guys. I'll keep checking in on you. Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC - Friday, June 20, 2003 10:18 PM CDT Nancy, you crack me up. Here you are stuck in the apartment, administering meds, going to clinic and PT, and yet you still have time to be a realtor! I guess that proves that He never gives us more than we can bear. Your faithfulness and commitment to Him still amazes me. Throughout the good days and the bad, you still manage to inspire us with your words. Keep up the good work, Nolie! Debbie Moss <kdmoss1989@comcast.net> Rowlett, TX USA - Friday, June 20, 2003 9:41 PM CDT Nolan and family, We are praying for you that you will not get sick, and that your fevers will go away. We are so grateful for the continued prayers and support that you have offered us these last several weeks. They have been extremely rough, but once again God has demonstrated that he is in control, and Noah has surprised us all again by doing things his own way. We will keep you and your family in our thoughts and prayers, asking God to continue to bless you as you reach your 100 day mark to going home. God bless, Aloha, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Friday, June 20, 2003 1:12 PM CDT Nancy, I really do wish I was there to share a cup of tea with you! But until you and Nolan are safley home with Sam, Cooper and Boo, everytime I have a cup I'll say one more prayer for the 100th day!!! I hope you will be able to use the candy for to speard some sunshine around to the other families or just to sweeten your life a little bit! Please give some to Debbie, Noah's mom and give her a big hug for me and tell her I really do want to be just like Noah when I go up, brave and strong! I will also continue to pray for her baby until he is also home safely in her arms! My love and prayers as always, Tammy Rajabi <tammyrajabi@aol.com> Katy, TX - Friday, June 20, 2003 10:37 AM CDT Nancy - I am glad you are feeling better today. Your endurance though this can only be explained by having a relationship with God. I keep you and your family in my thoughts and prayers each day. Hope you get to go home as close to day 100 as possible. Give Nolan extra hugs and kisses. Susan Gothard <sgothard@experio.com> Rowlett, TX 75089 - Friday, June 20, 2003 10:25 AM CDT Keep up the fantastic work Nolie. You'll be out of there before you know it. Nancy, I just want you to know that you are such an inspiration to me. I cannot explain the effect you have had on me in the last couple of months. But my faith is growing because of you and Sam. The Lord has placed your family in my heart and I continue to pray for each and every one of you. I know He has big things in store for all of us, but especially for Nolie. May God continue to bless you!! Kim Barron <kbarron@ibsa.com> Rowlett, TX USA - Friday, June 20, 2003 10:02 AM CDT Nancy, Just checking in...will be praying that Nolan has no infection to prevent your 100 day breakout! Also, checking on Noah...soooo glad to hear his good news and pray for more! Glad you got your box from Holly...just wish that you and Holly could have spent the money together, but guess God had other plans! Carla Houston, - Friday, June 20, 2003 1:22 AM CDT Just hope this brings you a smile and a kiss across the miles. I miss you and I am thinking about you!! Now that the end is in sight the days get longer huh! Seems like when we first started this journey the days were shorter! I will see you again real soon. I know how easy it is to get down and out sitting in that apartment. At least you like to read!! Those walls can grow in pretty quickly. Just remember we will be back together soon and that the Lord makes a very good friend. Just like the footprints poem, when you think you are walking alone it is only because the Lord is carrying you. In good or bad, He will always be by your side even when I cannot be. I love you and miss you. You are my strength. You are such a wonderful example of what God intended a mother and a wife to be. You hold your head high and know that God will bless you for being faithful to Him. Sammy Home, - Friday, June 20, 2003 0:07 AM CDT Nancy, I'm sorry you've been feeling down. I know how attached you get via the caringbridge sites and how heartbroken you feel when things aren't going well for these precious little ones. I can't imagine how hard it is when you are right in the middle of it, worrying about your own little one and the ones you've come to love. I hope it brings you comfort to know that you are thought about and prayed for every single day. Sweet Nolan, I hope you get over your cold real soon so you can get to go home at 101 days! Cast thy burdens upon the Lord and he shall sustain thee, Psalms 55:22. Robin Boger <Robin.Boger@rbc.com> Lewisville, NC - Thursday, June 19, 2003 8:26 PM CDT Oh Nancy, It's ok to give "down" updates too. That's part of your life. You need to express that part too. If your journal was just happy stuff then it would not be real!!!! We are praying for you and all our BMT babies. Love and HUGS! Tami Slawson <TLSlawson@aol.com> La Verne , CA - Thursday, June 19, 2003 5:29 PM CDT Good Morning Nancy and Nolie! You guys have been on my heart and mind for a few days and I'm sorry I'm just now getting to post a message. We'll be praying that no infection is present! Nancy, I'll also be praying that God brings you joy in the midst of what you're going through. I'm so glad to hear you guys are on the way home, you must be so excited. We'll be out of pocket for a week or so, so I'll check on you when we return. You are continually in my thoughts and prayers. Love, Cindy, Ward and the Girls Cindy Scobee <cdscobee@msn.com> Scotch Plains, NJ USA - Thursday, June 19, 2003 7:43 AM CDT Nancy and Nolan, Good morning! So glad to hear that things are going well. I will be praying that nothing shows up on the culture for infection. Keep fighting Nolan. Your doing great!! In my thoughts and prayers always. Have a great weekend. Stephanie Conner Cana, Va - Thursday, June 19, 2003 5:02 AM CDT Nancy, I'm sorry that things are looking a little blue right now. Maybe it's so that going home will be even sweeter? Just think of it like Christmas. Or like your wedding day or due dates for the births of your children. Good things that are worth the wait is what I have in mind. If that doesn't help, try this: Psalm 70:4-5 "Let all who seek You rejoice and be glad in You; and let those who love Your salvation say continually, 'Let God be magnified.' But I am afflicted and needy; You are my help and my deliverer; O Lord, do not delay." Praying that the line will not be growing anything it shouldn't and that the WBC is high because Nolan is just a TIGER at beating this thing! Still believing for the 100 day release! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Wednesday, June 18, 2003 10:24 PM CDT Nancy, I'm sorry that things are looking a little blue right now. Maybe it's so that going home will be even sweeter? Just think of it like Christmas. Or like your wedding day or due dates for the births of your children. Good things that are worth the wait is what I have in mind. If that doesn't help, try this: Psalm 70:4-5 "Let all who seek You rejoice and be glad in You; and let those who love Your salvation say continually, 'Let God be magnified.' But I am afflicted and needy; You are my help and my deliverer; O Lord, do not delay." Praying that the line will not be growing anything it shouldn't and that the WBC is high because Nolan is just a TIGER at beating this thing! Still believing for the 100 day release! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Wednesday, June 18, 2003 10:24 PM CDT Nancy, I am so glad Nolan continues to improve. It must be very hard to be surrounded by so many kids that are so sick in addition to being away from the rest of your family. We really never will understand what your life at Duke has been like. We pray everyday for Nolan, your family, and the other kids you have indirectly introduced us to. I miss you here and can't wait to see you all back home. Give Nolan a big kiss and tell him to keep enjoying PT so he can start chasing Cooper and Mackenzie around the house soon! Katie Erie, CO - Wednesday, June 18, 2003 10:04 PM CDT Nancy, hold your head up. God's still holding your hand. He'll carry you the rest of the way. Like you really need the support, you've been supporting everyone with all your wisdom. The end is drawing near. Just keep leaning on Him. Nolan has made it in leaps and bounds. I'm sure he is surprising all the medical team, but not us. We know God's hand. It is so wonderful that you are finally there. The lessons you have learned are far more than most. We all pray for your family daily. We miss you. Lesha Daniel Katy, TX - Wednesday, June 18, 2003 9:01 PM CDT Good morning :-) Just checking in! Glad to hear our Nolan is still holding his own and doing well. Each day I get into the office I check off one more day on my calendar. The countdown is getting smaller!! Oh how I pray Nolan's body is healthy enough that he can return "home" to heal. I'm thinking about each of you - praying for you, loving you and missing you! "For we walk by faith, not by sight." II Cor. 5:7 Love, Chelle The Colony, TX USA - Wednesday, June 18, 2003 9:52 AM CDT I read your journal almost every day, but don't often sign your guestbook. Just wanted to say how excited we are that your 100th day is looming on the horizon! God is good! I love seeing Nolan's smile every day on his webpage! Carla Redhair Houston, TX - Wednesday, June 18, 2003 0:21 AM CDT Isn't it strange how we can get a little down at the times when things are going so well? I think it has something to do with life rhythms, where certain times, events, or even odors can bring us up or down without us realizing it. Of course, the prospects of being left to deal with everything alone can certainly trigger it! In any case, I will be praying with everyone else here that all goes better than you ever expected and that Nolan's cold will disappear pronto so that you can get the the Fish Tank Room that has no fish tank (?)! Also that the 100 day first at Duke will happen for you! Remember, the joy of the Lord is your strength! Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Tuesday, June 17, 2003 7:49 PM CDT sending big hugs to you and nolan....hope today was a better day....i sent you an email- i will be in your area on thursday -if you guys are up for a visit, let me know.....hope you and nolan have a good nite! God bless........ elisabeth <eau1055@aol.com > va - Tuesday, June 17, 2003 6:13 PM CDT Dear Nancy, Sam, Nolie and family, Just checking in with a word of love and to let you know you are in my thoughts and prayers. Praying all continues to go well and you will soon be home with your other kids. I know how hard it is to be away from them, and we were only 1 1/2 hours apart from Reese, Shawn and Toni! We were so lucky to live close enough to Duke to be able to make weekend trips, or come anytime we were needed. I just know you will be home soon and Nolan will get to be with his sister and brother and have his Mom and Dad all together again. I hope you get to visit Reese's website to view the beautiful picture Shawn posted. Shawn has a way of sharing her spiritual feelings and love in a very special way. Nolie, Keep up the good work and you will be home in no time. Love to you all, Julia, Taylor and Reese's Nanna.P.S. I love looking at Nolan's picture and will always remember seeing that boy with the wild hair so like Reesie's, being rolled down the PICU hall and thinking,"Gosh he looks just like Reese!" Everytime I look at his picture and see that wide happy smile I feel a gladness in my heart and KNOW that he will be OK!!!! Julia Hill <nannajulia@aol.com> Clemmons, NC - Tuesday, June 17, 2003 2:04 PM CDT Nancy, You've made it this far, I know that it's tough, but you're so close! While there have been bumps, things seem to be going so well for Nolan. I'm glad to hear that you may set the record for going home at 100 days exactly. It looks like we may be gone when you get back, so if you do break out on the 14th or 15th, we may be able to squeeze another few days here for the homecoming. Hope things continue so positively. Kim Anthony Broomfield, CO USA - Tuesday, June 17, 2003 12:07 AM CDT Sam and Nancy, Good morning! I hope that all is well there. I hope that Sam has a safe trip back home and that he can come back even quicker. Way to go Nolan!!! Keep up the good work buddy. I pray for you daily that Nolan can continue to get better and that he can get over the virus. Keep up tha good work and hopefully in July you can all be together and won't have to worry about being apart again. God Bless you all and have a great week. Stephanie Conner Cana, Va - Tuesday, June 17, 2003 5:38 AM CDT Hey Guys Hope you had a great Father's Day Sam. I had a great surprize. Benje my oldest son called before church and wished me Happy Father's Day then in the evening Bevan called and wished me Happy Father's Day. and then Cirila Hope 2 yr. old Granddaughter called from Canada with a Happy Papa. and that topped it off. You know what? Grandkids are the one thing that makes getting older worthwhile. I can hardly wait till you are chasing Nolan's kids around. Nancy, I know that you thought that everone ministered to you when you were home but actually you ministered to us. Our lives are better because God has put the Ramsey's in our life. Beverley and I love you all so much. Isn't God so kewl My verse for the rest of the year is Deuteronomy 4:29 Pastor Dwayne and Beverley <drbartley@msn.com> Lafayette, CO USA - Monday, June 16, 2003 10:35 PM CDT Happy belated birthday and Father's day~~~~ hope all is well and Nolan over his virus.......... Elisabeth va - Monday, June 16, 2003 1:32 PM CDT Happy fathers day Sam. Nolan I miss you already and would not take anything for the time I had with you. Just make Mom or Dad get in that rocker and rock you while you have your meds. I got home with no problems just a short delay at RDA. Love you all, Nana Lorene Davis <nanaingarland@aol.com> Garland, Tx USA - Sunday, June 15, 2003 10:37 PM CDT Happy Birthday and Father's Day, Sam. I'm sure that Nolan doing so well is present enough for you! Nancy, I will be praying extra hard for you as you deal with Nana leaving - what a blessing she has been to you there! And Sam going back to "real" life must tug at you so! But soon you will be home for good! God is good all the time! All the time, God is good! Carolyn Wyman Belding, MI - Sunday, June 15, 2003 8:49 PM CDT Sam, Just want to wish you a Happy Father's Day. Nolan, we hope that you are doing well, not having any more signs of any respiratory virus stuff. We continue to pray for you and your family each day. We are so pleased that you are doing so well and hope you are able to make that record of going home at your 100 days. God bless. Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Sunday, June 15, 2003 6:35 PM CDT Happy Belated Birthday & Happy Father's Day Sam. Prayers and Love from Maine. Chris & Noreen <talkntalkn@aol.com> - Sunday, June 15, 2003 2:09 PM CDT Good Morning! Hope all is well there. Happy Father's Day Sam!! Nolan, keep up the good work buddy! Fight that old cold. Always praying for you all. God Bless! Stephanie Conner Cana, Va - Sunday, June 15, 2003 6:29 AM CDT Click here to see older entries of the guestbook |
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