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Hello and welcome to Jeremy's page
it's here where you'll get to know
All about this wonderful guy
and the journey he undergoes
He fights his battles everyday
not like just on a movie screen
He's sure a hero in our eyes
one of the bravest that we've seen
Long hard days and even harder nights
don't seem to get our Jeremy down
He just picks up his battle armor
and an awesome warrior can be found
Sometimes when Jeremy gets tired
and maybe a just little bit down
He looks back and thinks "yes I can"
and that fighting spirit again rebounds
We are glad you stopped by to visit
a true hero who is now your friend
Please leave your prayers and comments
after visiting Jeremy's page to the end
Copyright ©2007 Island Princess
Welcome To Jeremy's Webpage! It has been created to keep family and friends updated about Jeremy's on going battle with a Mitochondrial Disorder called MNGIE. ( Mitochondrial Intestinal Neurogastric Encephalopathy. Jeremy has gone through a lot in his life, he is currently fed TPN through an IV catheter that is inserted into his chest and into the heart, this provides all of the nutrition that jeremy needs on a daily basis, he also receives IV fluids and Fentynol through a PCA pump. He is on two liters of oxygen through out the day and on numerous other medications just to get by on a daily basis. It is hard to believe this when I see jeremy because he is such a fighter. So we are going to live on faith and hope and prayers that he fights this battle. As a family we are going to keep on pushing and fighting. Jeremy is one heck of a STORMTROOPER, he has made it through things that we never thought he would, so as long is there is one ounce of hope in us we are going to keep on pushing. Please sign the guestbook so that we know that you stopped by. To learn about Mitochondrial disorders please visit www.UMDF.org
Jeremy is showing signs of getting weaker with his lungs and being more and more tired throughout the day, but we manage to ge through just like before.
Many nights we pray with no proof that anyone could hear, and our hearts a hopeful song we barely understand.Now we are not afraid, although we know theres much to fear. We were moving mountains long before we knew we could. There can be miracles when you BELIEVE, though hope is frail, it's hard to kill. In this time of fear when prayers so often proove in vain, Hope seems like the summer birds, too swiftly blown away. Now I'm standing here, my hearts so full I can't explain, Seeking faith and speaking words I never thought I'd say. So remember there can be MIRACLES when you BELIEVE. Miracles don't always happen when you ask, and it's easy to give in to your fear. But when you are blinded by your pain and you can't see your way safe through the rain, thought of a still resillient voice says, love is very nearLife is not a race, Do take it slower, hear the music, before the song is over.
 
Thinking to myself I wonder,
Why do I get sick?
Is it my fault,
Or is chance the culprit?
Chance it is, I believe,
But it is courage to accept
The limits, the meds, the treatments
And to act upon them.
Difference confuses me.
My illness marks me as different
Yet my heart beats as does yours
I laugh, I cry, I learn like you.
I wish you could see as I do
That the important things about me
Are not unlike the important things about you.
Compassion, humor, curiosity, wonder
They are what make me the me that
Wants to get to know the you
that beats beneath your surface.
I hope that we will like one another.
Why ever not
COMING SOON
STAR WARS MEDLEY
Journal
Wednesday, June 18, 2008 11:47 AM CDT Thank you to all who have sent your condolences, Jeremy and the rest of the family have greatly appreciated them..
Thank you for your thoughts and prayers!
Hello to everyone,
I dont know how to say this, but i wanted to let you all know that as of Fathers Day evening, Jeremy's brother had hung him self in his room, Jeremy was the one that found him. It has been very hard on us, but we are asking for lots of prayers ......... Jeremy is not handling this very well at all, neither of us are, but i know that all of you know jeremy through here and we are asking for a ton of prayers to help get us through this.
We have set up a memorial fund,
joseph Michael Ledbetter Willis
Memorial Fund account number 200518
Public service credit union
2529 North lincoln ave
Loveland, colorado 80538
970-416 5161 karen Durlin
Our home address is
4067 sheridan ave
Loveland colorado..
there will be an obituary at www.allnutt.com
Read Journal History
Hospital Information: Patient Room: **Home** PSL
Colorado
Links: www.umdf.org Info about Mitochondrial Diseases
www.oley.org Great source of information
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