Hello and welcome to Jeremy's page
it's here where you'll get to know
All about this wonderful guy
and the journey he undergoes

He fights his battles everyday
not like just on a movie screen
He's sure a hero in our eyes
one of the bravest that we've seen

Long hard days and even harder nights
don't seem to get our Jeremy down
He just picks up his battle armor
and an awesome warrior can be found

Sometimes when Jeremy gets tired
and maybe a just little bit down
He looks back and thinks "yes I can"
and that fighting spirit again rebounds

We are glad you stopped by to visit
a true hero who is now your friend
Please leave your prayers and comments
after visiting Jeremy's page to the end

Copyright ©2007 Island Princess

Cool Slideshows

Welcome To Jeremy's Webpage! It has been created to keep family and friends updated about Jeremy's on going battle with a Mitochondrial Disorder called MNGIE. ( Mitochondrial Intestinal Neurogastric Encephalopathy. Jeremy has gone through a lot in his life, he is currently fed TPN through an IV catheter that is inserted into his chest and into the heart, this provides all of the nutrition that jeremy needs on a daily basis, he also receives IV fluids and Fentynol through a PCA pump. He is on two liters of oxygen through out the day and on numerous other medications just to get by on a daily basis. It is hard to believe this when I see jeremy because he is such a fighter. So we are going to live on faith and hope and prayers that he fights this battle. As a family we are going to keep on pushing and fighting. Jeremy is one heck of a STORMTROOPER, he has made it through things that we never thought he would, so as long is there is one ounce of hope in us we are going to keep on pushing. Please sign the guestbook so that we know that you stopped by. To learn about Mitochondrial disorders please visit www.UMDF.org

Jeremy is showing signs of getting weaker with his lungs and being more and more tired throughout the day, but we manage to ge through just like before.







Many nights we pray with no proof that anyone could hear, and our hearts a hopeful song we barely understand.Now we are not afraid, although we know theres much to fear. We were moving mountains long before we knew we could. There can be miracles when you BELIEVE, though hope is frail, it's hard to kill. In this time of fear when prayers so often proove in vain, Hope seems like the summer birds, too swiftly blown away. Now I'm standing here, my hearts so full I can't explain, Seeking faith and speaking words I never thought I'd say. So remember there can be MIRACLES when you BELIEVE. Miracles don't always happen when you ask, and it's easy to give in to your fear. But when you are blinded by your pain and you can't see your way safe through the rain, thought of a still resillient voice says, love is very nearLife is not a race, Do take it slower, hear the music, before the song is over.




















Thinking to myself I wonder,
Why do I get sick?
Is it my fault,
Or is chance the culprit?
Chance it is, I believe,
But it is courage to accept
The limits, the meds, the treatments
And to act upon them.
Difference confuses me.
My illness marks me as different
Yet my heart beats as does yours
I laugh, I cry, I learn like you.
I wish you could see as I do
That the important things about me
Are not unlike the important things about you.
Compassion, humor, curiosity, wonder
They are what make me the me that
Wants to get to know the you
that beats beneath your surface.
I hope that we will like one another.
Why ever not





COMING SOON















STAR WARS MEDLEY

COURTESY
OF
GALAXYFARAWAY.COM

adopt your own virtual pet!

Journal

Monday, January 5, 2009 3:19 PM CST

Happy New Year to everyone!
ours started out with a doozie, Mr jeremy developed 105 temps on Friday and positive blood cultures on saturday, so once again we are on vanco. We went to see Infectious Disease today and we are going to keep Jeremy on vanco for a month.
Other than that things have been going pretty good I suppose, he went bowling a week ago and hurt his knee pretty bad, it is still swollen today and so the pediatrician has asked that we go see an orthopedic doctor this afternoon to make sure that it is not really hurt or infection has set in, beings it has remained swollen for a whole week now.

That is all the news i have for now, I will update more as the day goes on to see how is knee is.

Love and hugs to all
Missy

Hospital Information:

Patient Room: **Home**

PSL

Colorado

Links:

E-mail Author: willisdm@msn.com

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 60846 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.