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Tuesday, January 15, 2008 5:17 PM CST

Hi Everyone,
My mom and I went to my Orthopedics doctor. He said that my muscular problems that I am having are caused my bone disease. Also we got him to check the bruises on my legs. He said that it isn't broken blood vessels and he said they are bruises. The bruises keep coming and are getting worse. The bruises are a black and purple color. My legs are in severe pain, like an achy pain. My orthopedics doctor said that it could be my platelets, or blood clots. Even though in away I hope it has nothing to do with my blood, in a way I hope it does, so we can find out what is causing the bruises. I am also a lot more tired than usual, which may not meaning anything.

My Jaw is still pretty swollen, and I am taking an anti inflammatory. Also my head is in so much pain, and I had to take my special K spray, to help the pain, but I gues the pain is so bad today that it doesn't want to go away.

Our good friend Jim, who was also our neighbor past away on Thursday sometime late Wednesday night or early Thursday morning. He was 81 and he was in perfect health. He passed away from a massive heart attack. He was a great and jolly guy. Always friendly and caring about myself and my family. He always called me Snooks, and he was good to our dog Coco. Coco loved Jim, and Jim loved Coco. My parents and I, are going to miss Jim, and Coco will miss him too. Jim didn't believe in funeral's so they are having a get together on Thursday at the Funeral home instead.

Anyone who would like to email me, can at: fighter_smiley@yahoo.ca
Anyone who has MSN Messanger or AOL Messanger and want to add me to your friends list, please feel free to do so. I love chatting with and meeting new people. My MSN Messanger is: hockeys_life@hotmail.com
My AIM is: nevergiveup301
If anyone has a myspace and would like to add me to your list, you can at: http://www.myspace.com/superhockeyfan

Monday, January 14, 2008 3:53 PM CST

Hi Everyone,
Well I went to my family doctor on Friday morning. He said that the bruises are broken blood vessels. However everyone I have talked to said that broken blood vessels are red and puffy. Mine are more like bruises. A blackish purplish color! The bruises just keep coming, and my legs both really ache. I am going to my orthopedics doctor tomorrow so we will see what he has to say. I hope we find some answers! My muscles in my jaw are apparently inflamed and that is why it is so swollen. I do have some anti am inflammatory.
I am sorry this update is short, but I will update more when I find out what the doctor had to say.

If anyone would like to email me, please feel free at: fighter_smiley@yahoo.ca
If any of you have MSN Messanger or AIM you can feel free to add me to your friend lists and chat with me anytime. AIM: nevergiveup301
MSN Messanger: hockeys_life@hotmail.com
If any of you have a myspace and would like to add me as a friend you can at: www.myspace.com/superhockeyfan

Wednesday, January 9, 2008 4:02 PM CST

Hi Everyone,
Well I wish I had good news to update on my health but unfortunately I don't. My Jaw is really really painful right now. It is swollen up like a balloon! It is really difficult to eat as well. When there is pressure like that on my jaw, it puts pressure on my head! I have had really bad headaches since Monday. My headache are even worse when I chew! We are hoping that the Titanium implant isn't infected. I am going to my family doctor on Friday, so hopefully he will give me a anti-inflammatory to help bring down the swelling. I also have discovered bruises on my legs. I have two on my right leg, and three on my left. They are pretty painful. Well that's about it for the update today.

If anyone would like to email me, my email is: fighter_smiley@yahoo.ca
If anyone has MSN Messanger and would like to add me as a friend, you can feel free to at: my msn email is: hockeys_life@hotmail.com
My AOL Messanger is: nevergiveup301. If you would like to add me you can feel free to do so. I love to chat and meet new people. Also if anyone has Myspace you can add me as a friend on that too: www.myspace.com/superhockeyfan

Friday, January 4, 2008 4:32 PM CST

Hi Everyone,
Well I hope you all had a great Christmas and New Years! I was a bit sick over Christmas, from the quartezone shots, and in a lot of pain, but I managed to make the best of it! I was pretty spoiled. I got tons of hockey stuff. I got a big NHL blanket. I got Pink Montreal Canadian Slippers, Two NHL Pj's, My NHL and WHL stat Book, a small picutre of Sidney Crosby, three very old Blazer Shirts, and mini hockey stick that you decorate and put your own team sticker on it. I also got a mini Roberto Luongo mask! I got the game of Life for my computer, and I also got the electornic board game of Life, Twists and Turns. I also got some Nintendo DS games. I got a bunch of other stuff too.

My New Years was pretty good, even though I was sick with a bad head ache. I celebrated the new year with some friends, and we played some games, ate good food, and watched the dvd, hair spray.

As for my health it could be better. I have not been feeling very well. My groin is very very painful, and my head is killing me today. My bone on my right hand is swallen and it hurts too. I have been getting a burning pain today in my chest. My lower back is hurting too. The muscle in my groin is very tight and I notice it more when I try to walk.

I have three prayer requests today. The first one, I would like to ask everyone to pray for my mom. My mom suffers from Fibromyalgia, and a few days ago when she was out walking down town on here lunch break, she fell. She has hurt her leg pretty bad. Please pray that she didn't break it, and that hopefully she just badly bruised it. It is not good if it is badly bruised but it would be better than broken.

My Uncle Ken has a rare form of Lymphoma type cancer, and it is terminal. They didn't say how long he has to live, but he will pass away with it, eventually. Anyways on Christmas Eve, Christmas Day and Boxing day, he ended up in the hospital. He was very fatigue, and had chest pains. They think it is his engina, which is the heart. He is out of
the hospital now, but I am still asking for prayers for him.

My Uncle Ken's brother Denis was diagnosed recently with the end stages of Leukimia which is a rare form. Anyways he has been given 6 months to live.

I watched the World Jr's today and Canada won against the US! So that means they are going to the gold medal round! The Blazers play tonight against Tri-city's so I am looking forward to going to the game.

If anyone wants to feel free to email me you can at: fighter_smiley@yahoo.ca and I will reply back. Also if you have MSN Messanger or AOL Messanger you can add me to your list, I love to meet and chat with new people. MSN Messanger: hockeys_life@hotmail.com My AOL Messanger is: nevergiveup301. I also have myspace so if you have it, you can add me as a friend on there too. http://www.myspace.com/superhockeyfan
I also have a care page at carepages.com and my care page name is: nevergiveup12 I have tons of pictures of me and hockey players on my myspace page and my care page.

Sunday, December 23, 2007 1:01 PM CST

Hi Everyone,
Well I got back from Vancouver on Thursday. Tueseday, my dad and I went and saw my friend Jeneece, who I have known since she was 4 and she will be 14 in Jan. Jeneece, like me, has gone through a lot. She has a rare form of NF disease. Right now she just had back surgery and has to lay flat on her back for about two months. So she will be in BC. Childrens Hospital over Christmas. Jeneece is the Variety show of Hearts Celebrity and her goal is to reach a million dollars for Variety, with all her penny drives. She is such an inspiration to me! While I was there visiting her, her friend Callum and his mom where there. Callum and his mom are from Victoria and he is a kid actor, well just starting out. He is an awesome kid too. My friend knitted a beautiful blanket for Jeneece and I gave her a basket of stuff.

Anyways on Wed. it was not a good day for me. I got to quartezone shots in the groin, two in the hip, and two in the leg! All on the left side. Then the bone on my right ankle was swallen and it turns out that I now have Bursitis and Tendonitis in there too, as well as the hip, groin, and leg on the left side. So now it is so difficult to walk, because it is so painful. I have to use the crutches during Christmas, because I can't put much wait on my swallen ankle. Which is very frustrating because I am so independant. I also got quartezone shots, in the back of the neck, two of them. So I am pretty sick to my stomache, and very swety a lot too. I also think the shots in the groin might have irritated my baldder because at night, I wake up every hour to go to the bathroom. I even take a spray that is supposed to stop me from going to the bathroom at night! My groin is starting to hurt a bit now that the freezing has came out. On Wed night, while I was at Easter Seal House, I forgot that my whole left side was frozen. Anyways I used the stairs, and my leg gave out, meaning it collapsed, and I fell down the stairs! My dad was in the lobby and he came running, because he heard me say Owe, Owe, owe. He said Jenna that is all we need. It's funny first my bones are affected and now my muscles are!

My email is: fighter_smiley@yahoo.ca, you can feel free to email me anytime.
If you have MSN Messanger, or AOL Messanger, you can add me to your list, and we can chat. I love meeting new friends, and new people. My MSN Messanger email is: hockeys_life@hotmail.com, or my AOL Messanger is: nevergiveup301
If you have a myspace you can also add me as a friend. http://www.myspace.com/superhockeyfan I have tons of hockey photos on there.

I hope that you all have a very Merry Christmas. Please pray for my friend Jeneece and all the other kids out there that have to spend Christmas in the hospital.
Jenna

Wednesday, December 12, 2007 10:28 PM CST

Hi Everyone,
Well It has been awhile since I have updated. I wish I had good news about my health though. For the past two weeks I have been in so much pain, that it made me sick to my tummy. My family doctor just said it was muscles and said there was nothing he could do for it, or give me for it. The pain was and is still in the groin/hips and legs area. I had an appointment to see a orthapedics specialist who is also a sports doctor. It was only a two week wait, and I got to see him last Wed. Well my mom and I were able to see him right away as we went there. We didn't have to wait in the waiting room or anything. He kept touching different areas around the leg and hip to see where it was sore. Where the most pain was, I let him know. Well he was able to find a diagnosis right away. I now have Tendonitis and Bursitis in the hips, legs, and groin area. It is really really painful to walk and put weight on the hip and groin. I now have a total of 12 medical conditions that I am fighting. I have also had an yeast infection as well.

The doctor wants me to do physio therapy from now on. Also he wants me to have more quartezone shots in the hips, groin and legs area. I usually just get them in the back of the neck and head, but now he wants them in those other three area's. I am going to Vancouver with my dad on December 18th and 19 for Quartezone shots in the neck and back. I also have to get them in the other three area's that specialist wants. That will mean that I will be messed up probablly for a month or so. They usually make me feel nauses for three wks and sometimes a month. Which mean I will likely be sick for Christmas. Sometimes the shots help the pain and sometimes it doesen't.

As of hockey, the Blazers are up and down this year. Maybe and hopefully the new year will be better. I am friends with the back up goaltender this year. His name is James, and he is 16. He is a better goalie then our starting goaltender. James, had a brain tumor when he was two years old. He was near death a few times, fought it, survived it and is now in the position where he is today. He is one of my hero's and inspirations.

I am getting excited for Christmas! Anyways I hope all of you have a good Christmas and a Happy New Year.
If anyone would like to email me you can at: fighter
_smiley@yahoo.ca Anyone who has myspace, you can add me to your friends if you would like. My myspace is: superhockeyfan
Anyone who has face book can add me as a friend. I am under Jenna Fowler and my network is Kellowna
Anyone who had AIM or MSN Messanger, you can also feel free to add me as a friend and chat with me sometime. My AIM is: nevergiveup301 My MSN Messanger is: hockeys_life@hotmail.com
I also have a care page: http://www.carepages.com my page name is: nevergiveup12
Thank you all for taking the time to sign my guest book.
Jenna

Friday, November 9, 2007 7:08 PM CST

Hi Everybody,
Sorry I have been taking so long to update. My pain is really really bad lately. My hip is very very painful, and so are my legs. We are not sure why and it is really hard for me to walk. I am still getting quartezone shots for the pain, which is helping only my head a bit, but not for long periods of time anymore. We will have to get my hip looked at, as soon as we find a bone specialist.

I went to the Seachelt on the Sunshine coast to speak on inclussion and bullying. I spoke to my largest crowd which was a 120 people. I had a great, fun time, and met knew friends.

As for Hockey, The Kamloops Blazers aren't doing well at all this year. They have only one like three or four games this season! The new owners which are Mark Recchi, Daryl Sydore who both play for the Penguins, Shane Doan, who is the Captain for Phenoix Cyotes, Jarome Iginla who I think is still the Captian for the Flames, and Tom gaglardi, fired the head coach of the Blazers. They now have a new interm coach for the season, so I hope they can do better.
They play tonight in Spokane, here tommorrow night against Chilliwack, and in Vancouver on Sunday. I am going on the Blazers booster Club bus for the Giants and Blazers game.

We have to go to Vancouver on the 18th and 19th of December.
Thankyou all for comming by my site.
My email: fighter_smiley@ yahoo.ca
My MSN Messanger ID: hockeys_life@hotmail.com
My AIM: nevergiveup301
And my myspace: http://www.myspace.com/superhockeyfan
I am also on face book, under Jenna Fowler, Network is Kellowna BC. (Kellowna BC, is in Canada.
Have a great weekend.

Sunday, July 29, 2007 1:03 PM CDT

Hi Everyone,
I just wanted to update everyone on how I am doing. I still have the infection, but I am better than I have been. I am still really really tired. I had to go off the Penicillin because it gave me a bad rash and made me really itchy. I am on a new drug for infection now and it is making me really really tired. I haven't been doing much lately, just trying to get over this darn infection. I do not like being sick. This year it seems like no matter what I do to try to get well things just keep comming up. All I can do though is stay positive.

I befriended a girl, who has down syndrome and she is 15 years old. Today I am having her over to my place for a visit. She doesn't have many friends, so I try to spend time with her when I can.

For the month of August I will be going to stay with a family, while my dad goes away fishing, and my mom goes to visit my grandma, (my mom's mom).

On Canada day, I got to have a picture with the Calder cup. My friend Ajay Baines, played for the Hamilton Bull dogs this year (A team in the AHL) The Montreal Canadians Farm Team, and Hamilton won the Calder cup. Ajay, got the winning the goal. So Ajay brought the cup to his parents house, and invited my dad and I to see it and get pictures with it! I was also in the news paper with Ajay, and the cup!

Well That's all for now. Thankyou for visiting me.
My Email is: fighter_smiley@yahho.ca Feel Free to email me any time.
My AIM Messanger ID is: nevergiveup301, and my MSN Messanger ID is: hockeys_life@hotmail.com Feel free to add me if you have either of those.
I also have a myspace. http://www.myspace.com/superhockeyfan

Friday, July 20, 2007 11:25 AM CDT

Hi Sorry Everyone,
I was going to journal this week, but then I got really sick, and I still am really sick so I haven't been on much. Anyways, I had teeth surgery last Thursday, and I now have a very bad infection in my tooth. I am in a lot of pain. I am on penesilen. The swelling has gone down, but the infection hasn't seemed to have cleared yet. If it doesen't clear, then I have to go into the hospital and be put on IV. I have a really bad cough. Missey, sorry I haven't updated sooner.
Thanks for caring Missey!
Jenna
fighter_smiley@yahoo.ca

Monday, May 21, 2007 1:09 PM CDT

Hi Everyone
Well I had a good long weekend. My buddy Jared was in BC. This weekend. It was so cool, cause I got to see him. I have not seen him since 2003, when he sent my dad and I to Disney Land and to LA to see The Kings game and meet all the players. Jared, used to play for the LA Kings. It was nice to see him, and we had a few laughs. Two of his friends came with him, and his friend's girlfriend.

I have been in a lot of pain and I think I am coming down with either sinus problems or a cold. In June, it is going to be a busy month for us. On June 5th we have to go to Vancouver. I have to see a dentist on the 6th, then I am getting more teeth surgery on the 7th. Then on the 13th, my mom and I are going to Prince George for a conference for young people, and adults who have developmental delays. It is also for family members and parents of people with developmental delays. Then on the 25th I have to go back to Vancouver. I finally got into the pain clinic that I have been waiting nine months for. They will be giving me a shot in the t-five nerve which is located in the head. It is supposed to help the pain, but I am not looking forward to it.

I really want the Ottawa Senators to win the cup, cause I want the cup to stay in Canada. I want the Ducks, to play-off against the Senators. I am so happy the Senators made the finals!

Well I hope everyone has good weekend.
If anyone has myspace, feel free to add me as a friend and we can chat. http://www.myspace.com/superhockeyfan
Feel free to add me to your msn messanger or your aol messanger.
My aim is: nevergiveup301
My msn messanger is: hockeys_life@hotmail.com
If anyone has face book, feel free to add me as a friend on there too, Im under Jenna Fowler.
My email is: fighter_smiley@yahoo.ca

Thursday, May 3, 2007 11:36 AM CDT

Hi Everyone,
Well I am having problems with pain still. My tooth is killing me. I am going to the dentist today to get it checked out. It is so painful, and I can't do anything or think, because the throbbing pain is so bad. I have tried Advil but it's not working, neither are my other pain medication.

I have an issue I would like to vent about, and I am sure a lot of kids, teens, and young adults, even older adults go through this. It is an issue with bullying. I suffered from bullying a lot, and still do. I was kicked, pushed, and even threatened. We have had prank phone calls here, and people calling and threatening my dad, that I would get my face bashed in. The guys would do all the physical stuff, and the girls who were related to the guys, friends of the guys or even girlfriends, would threaten me and verbally abuse me. The prank phone calls started with a teacher giving our unlisted phone number to a mother whose daughter didn't like me. The principals said it was my fault that it was my perception. My parents even got dragged into it. You see I think all of this happened because I was born with special needs, and an illness as well.

You see a friend of mine who has special needs, plays on a baseball team. It is a Special Olympics team. There is this kid on there that has behavioral problems and special needs as well. He taunts my friend and bullies him to the point that my friend reacts in away that he shouldn't. The coach told my friend that if he reacted this way again, he would get kicked off the team. My friend said that this other kid started it, but the coach never even heard this kid say something. The worker's who work with my friend, are telling him to ignore this kid. This kid yesterday, said something to my friend and my friend ignored him. After they got off the field the kid was talked to by one of my friends worker's. One of my friend's worker's is also my life skills worker. She called the person in charge of the special Olympics. The lady said she will talk to the coach and then if the kid does again he will be kicked off the team.

I am going to school's to talk about bullying and inclusion and trying to tell my story. You see I don't think this is right, no one should be bullied. I know that even people without special needs get bullied. I would like to try to make a difference on these kids, and teens and even teachers. Maybe I will make a difference and maybe I won't but it is worth trying.

Well on a more happier note my Vancouver Canucks have to try a lot harder if they want to go on further in the stanley cup finals. If they lose this game then they are out. If Vancouver gets knocked out, then I am cheering for the Ottawa Senators. I am actually cheering for them right now. and hopping they will beat the Devils.

Also if you want to look at more hockey pictures or any other pictures of mine, you can go to care pages.com my page name is: nevergiveup12 and you have to sign up as a visitor.

Anyone who has AOL Messanger or MSN Messanger, feel free to add me. My AIM Id: nevergiveup12 and my msn messanger email is: hockeys_life@hotmail.com
My email: fighter_smiley@yahoo.ca

Sunday, April 22, 2007 4:31Pacific

Hi Everyone,
Well my surgery went well I am really sick now though. The day after surgery, I couldn't even walk. I am still having trouble's walking. I am in lots and lots of pain, in my legs, back, teeth, and jaw. I was sicker yesterday then I am today, but I am still sick. My dad said he has never seen me so sick after surgery. I have been laying down all day, but I was able to help my mom around the yard, even though I don't have much energy. I hate being so sick. We can't understand why I am so sore in the legs, and back when it was the teeth that they operated on.

I met some wonderful new friends this time when I went down. One of my new little friends name is Maci, and she is three and a half years old. When she was born she was the smallest baby born in BC. and maybe even in Canada. She was the same size of a coke can. Her volcacords have been damage so she needs to have the trache in. She can talk with sign language though. She is so bright and amazing.

Well about my Canucks, I just don't know. They could of won the series against Dallas last night, but maybe there will be more effort in the next game, which is game seven tommorrow. If they get knocked out I am cheering for the Ducks, Sharks, and of course the Senators. Well That's all for now. Thank you for stopping by.
I have aol messanger now, a new one, cause the other one didn't work. My ID is: nevergiveup301
My email is: fighter_smiley@yahoo.ca
msn messanger email is: hockeys_life@hotmail.com

Sunday, April 8, 2007 1:41pacific

HAPPY EASTER!
I am doing ok. Lots of pain in the head. I wanted to write and let you all know that I am going for surgery on the 19th of April. We are leaving for Vancouver on the 16th. I am having surgery on my teeth, and I will be under for four hours. Even though I have had 21 surgerys, I am very scared, because of the fact, that I get very sick after the anesthetic. I will pull through it though, I am sure.

On the hockey front, Missey, I didn't think they got the division title, cause they lost to Colorado. I am still cheering for my Canucks, However I don't know if they will go far in the play-offs. I am hopping for the Canucks, Pittsburgh Penguins, or the Minnesota Wild, to get close to the cup in the play-offs.

Well I should get going. The Canucks game will be on in a few minutes and I don't want to miss any of the action. They are doing so well!
I just downloaded yahoo messenger, and my id is: nevergiveup26
My email is: fighter_smiley@yahoo.ca
Jenna

Sunday, April 1, 2007 4:55 PM CDT

Hi Everyone,
Well I am late updating the journal again. Today, I am not feeling that great. I have not slept that well, the last two nights. Today I am feeling sick to my stomach. I love reading so I have been reading books by my favorite author, all day. My favorite Author is Lurlene McDaniel.

I have been having lots of pain lately. The new meds he gave me in pill form aren't working. The nose spray works, sometimes, other times it doesn't. I have to email him soon to let him know.

I went to Kamloops Blazers Banquet on March 18th. It was awesome this year. I finally got to meet my hero Kelly Smith, who I have been talking to for a whole year. He was the guest speaker this year, and was great. Kelly is a paraplegic and he has a great positive attitude in life. He gave me a poster and he even put a personal message on it for me.

As most of you know, it was My birthday on March 23. I had a great day. I got lots of money so now I can build u my movie collection, ha ha. I got a gift card for Walmart and I need shorts so that is what I will buy. I got a Canuck Pillow, and a signed Blazers Jersey. My favorite gift was an MP3 Player from the Captain of the Blazers, Reid Jorgensen and his mom, and dad.

A reporter from the Free News paper in Kamloops, heard about the gift that the Jorgensen's gave me. So they are doing a story about it. I had to go yesterday, for a photo with Reid, taken by one of their Photographers. I am sure it will be a nice picture and article. I am very excited about this.

Well, I gotta get going. I hope everybody is well. Please keep all the kids, and adults fighting an illness in your thoughts and prayers.

My email: fighter_smiley@yahoo.ca
MSN Messanger: hockeys_life@hotmail.com

Saturday, March 3, 2007 7:07 PM CST

Hi Everyone
Well it's been awhile since updated. My birthday is on March 23 and I can't wait. Things have been frustrating for me and very stressful with my new worker. She doesn't seem to understand that I have developmental delays and that treating me like an adult doesn't always work, because I don't always think like an adult. My mom has tried to explain it to her, but she just doesn't seem to get it. For example, she told me that walking around the Colliseum doesn't mean about talking about my problems or friendship. I need to be able to express myself, and sometimes I need to express my frustrations more than once a day. She also said that she isn't going to treat me like a baby, and maybe that is what I need.

On the health front. My pain is worse and the jell he gave me isn't working. My nerve disease, Trigemnial Neuralgia effects the nerves in the face, and is very painful. The pain has now traveled to my ears. I fell last night at the hockey game, going up the stairs. I think I pulled a back muscle cause it is very sore.

I went and spoke to a grade 4 class at George Hilliard about my story and also about bullying and inclusion. I was received really well. The best response that I have ever had. I know the teacher very well, and he is a great guy, so maybe that is one of the reasons why. There was a little boy in the class who has a disease that effects the ears. He is such an inspiration, and he has a great smile. He told me that he gets bullied because he is small, but that he just turns around and walks away. I know that Nick can teach his classmates alot about life, because he has been through so much.



My email address: fighter_smiley@yahoo.ca
My msn messanger email: hockeys_life@hotmail.com

Saturday, February 10, 2007 5:22 PM CST

Hi Everyone,
Well It's been a tough week for me. My dad and I were in Vancouver all week. On Monday, I saw my nerve doctor. I was diagnosed with a painful nerve disease called, Trisemnial Neuralgia. She is going to push to get me into her pain clinic and it is the best in BC. Then they will do injections right in the T-5 nerve and that is where it's comming from. The nerve disease is caused by my joint implants operation.
After my appointment on Monday we went to the biggest mall in Vancouver and that is called Metrotown. On Tueseday, I just stayed at Easter Seal House all day.

Wedensday was a very sad day. My little friend Brooklyn who we called brookie, past away suddenly at the age of three. All she could do is laugh, smile, and sit in her stroller and sleep. She couldn't talk. So it was a blessing in away, but still really hard. She was sick all Tueseday night and just kept crying. Brookie, her mom Dianne, and her eight month old sister Christine, were all up untill six o clock in the morning. Then On Wed. morning between 7:30 and eight o clock, Dianne woke up and went down stairs and said Brooklyn's not breathing. So Sheila who works at Easter Seal House, went up and did mouth to mouth, but that didn't work. I came out of my room at eight o clock, and one of the cleaning ladies was crying out in the hall, and I asked her what was wrong, and she said, Brooklyn, Brooklyn. I went to the room, cause the door was open and I saw Brookie lying on the floor, then the paramedics came. I ran to my room and told my dad something happened to Brooklyn, and he was out of bed and out of the room in a flash. The paramedics took Brookie to the hospital after they spent awhile at Easter Seal House, working on her. My dad asked one of the paramedics how she was and he told him she was in grave condition. She past away shortly after that in the hospital. She has had thirty operations and she was only three. They had a funeral on Friday for her at Childrens hospital and my dad and I went. Were were close to Brookie, Dianne and Christine. I was asked by Dianne to read a poem at her funeral it is called Her Journeys just begun. It has hit me really hard, but I know that there will be no more pain, no more tubes, and no more surgeries, she is free.

We got to see our friends Sally and Miguel. Miguel is four years old and has had over 140 surgeries. Yet he is so full of life, and an inspiration to me.

On Wed. I went to see my friends little baby boy, Kadin. He was born at twenty four weeks, and he was a pound when he was born and now he is two pounds. After we saw kadin, we went to my appointment. He didn't give me any injections this time. He gave me a jell that my dad has to put on three times a day but so far it has not helped the severe pain.

Friday night I got to a Giants and Blazers game in Vancouver. The Giants won. We got to go downstairs after the game to see my buddy Reid who plays for the Giants. It was a fun night, even though during the day we had the funeral.

Well That's all for now. My msn messanger is: hockeys_life@hotmail.com
my email is: either fighter_smiley@yahoo.ca or fightersmiley@yahoo.ca it is one or the other.

Saturday, January 20, 2007 1:28 PM CST

Hi Everyone,
I will try to update this without having my computer crashing on me. We have taken my computer back three times to this place we got it from, and now after we came back home from Vancouver with it, it is now shutting it's shelf off and rebutting again. So I will have to put up with it untill we go back down there on the fourth.

Well things haven't been going to well for me. The meds I am on are making me have majour behavioral problems. Like last Saturday, I got so out of control, that I had to be put in a restraint to calm me down. Now I dont want to act this way, and I don't like acting this way, cause it's deffinatly not me. It was the first time that it got so out of controll. I wish there was some way of stopping it, but there isn't unless I go right off the Oxeycodeone and I need that for some pain release, even though I don't get much from it, it doese help ease the pain.

On my pain end, I have been in severe pain. I just got back from Vancouver on Thursday after seeing the doctors. He gave me three injections in the head for the pain and my head just swelled up and I have a black an blue bruise. I was just pale white after the injections too, for the whole night. I am still getting extreme nausea from the pain, and so far the shots haven't helped cause I have a bad headache. Sometimes they help sometimes they don't.

I also saw a dentist there, and I need about five operations or more on my teeth cause they are all rotten. Right now, we are looking about a six to nine month wait, and unfortionatly my dad's dental runs out, in June, so we have no idea how we are going to pay for it.

Last Saturday I went and visited this girl Zuzana, who lives in Kamloops, but her family is from Slovakia. She has been in pain since August, and no one can figure out what she is wrong. They say she has a nerve disease but what one they don't know. They were in the paper, so I called them up and talked to them, cause my case is alot simular. I have now became friends of the family, Zuzanna is 13yrs old.

Well That's all for now. Please keep Zuzanna and others who are suffering in your thoughts and prayers.
My new email is: fighter_smiley@yahoo.ca
My msn messanger address is: hockeys_life@hotmail.com

Thursday, January 4, 2007 0:10 AM CST

Hey Everyone,
I hope everyone had a good Christmas and New Years. I had a great New Years. I went to my friends sister place and had a blast, it was fun.

I still have pain lots. I went to the doctors today to have a physical done, and I have very low blood preasure, below 40. I am very light headed alot of the time, and tired all the time. The doctor says it is my meds that are causing it, but he didn't tell us if there was something we could do about it, or if it is a risk. My family doctor isn't the greatest doctor.

In the paper there was a story about a local girl who is 13 and is in extreme kind of like me. Anyways she was on the same meds I am on and have been for two years, and she had to go off them, because they were causing her to have kidney and liver problems. So she is not taking any meds. None of the doctors can diagnose her with anything, so they are thinking about going over seas to try to get a diagnosis. She is down in Vancouver, BC. Canada, at a private clinic getting tested for Lyme disease. I thought maybe it would be a nice thought to call the family and let them know that I was once as sick as their daughter, and I was once in the same position as them, back in 2004, where I had to go to the states for an operation, cause they couldn't do it here. If I was to call them, I would encourage them not to give up hope. I would let them know that I am thinking and praying for them. Who knows maybe I can offer my friendship to their daughter. They have gotten over a hundred calls since they have been in the paper. The family was encouraging people to keep calling. My parents said it is probably for money, but I don't know if I will call them. I have a big heart, and when I see or hear of people in need, I want to help them, and offer friendship to them.

That's all for now, I hope everyone has a nice weekend.
My email: hockeykid@telus.net
My dad's: kwfowler@telus.net
MSN Messanger: hockeys_life@hotmail.com

Wednesday, December 27, 2006 0:22 AM CST

Hello Everyone,
I hope everyone had a good Christmas? Mine was good, even though I was sick, but I still made the best of it. Today I was sick too, from the pain and shots of course. Christmas Eve, I went over to my friends place. When I came home, I opened a presant then went to bed at eleven. I was excited and in lots of pain. I was still up crying at 1am. I went to sleep a little after one, then woke up at six in pain. I was very tired, teary eyed, and still in pain on Christmas Day. Today, I am still not feeling well.

For Christmas I got spoiled. I got an NHL stat book, WHL stat book, and a CHL stat book. I got some pj's, a stuffed bear, This Light night art thing, Deal or No Deal game, game cube games, playstation 2 games, and a DS game. I also got the movie Talagada Nights, and Cars. I got other neat stuff as well. I also got a NHL quiz book, so now I can learn all about the NHL and the players.

For dinner on Christmas day, we went over to my aunt Shelli's and Uncle Mike's place for dinner. One of my cousins, Mike, My uncle Mike's son, has a little boy named Michael, but we all call him Mikey. Anyways as soon as I walked in the room, Mikey's face lit up like a Christmas tree. Then when it was time to leave, Mikey's mom Jen, told him it was time to give kisses, so instead of going to his grandma and grandpa who are my aunt and uncle, Mikey came straight for me, and gave me a kiss on the cheek.

Today, even though I wasn't well, my mom and I trecked out to Zellers, Walmart, and the Mall, for boxing day. I bought two more game cube games, a dice game, a book, and two video's Garfield and the tale of two kitties, and Just My Luck.

Please keep my aunt Charlene in your prayers, she has a leison on her groin and it keeps getting bigger, we are hopping it's not cancer.

My two cousins, Aunt and Uncle are comming tomorrow and staying untill Saturday. Theya re from Strathmore Alberta. I am really close to the middle child Kaitlynn she is 16.

Well I hope everyone has had a good Christmas and that you all have a good New Years.

My email addy's:
My dad's: kwfowler@telus.net
Mine: hockeykid@telus.net
My MSN Messanger: hockeys_life@hotmail.com

Saturday, December 23, 2006 6:29 PM CST

Hi Everyone,
I just wanted to write a short note before Christmas. I am still not feeling well and I am also very moody for some reason. My pain is now back, and it's pretty bad.


There is a lady who works with my mom. Her name is Renee, and last year a week before Christmas, she lost her husband to a heart attack, then five days later she lost her dad to a heart attack. Renee has two kids 13 and 12 that she now has to raise on her own. Tonight as our company was leaving we went to open the door and there was a big bag outside and a parcel inside the bag, with my name on it. I opened the card and this is the special note she left me:
Jenna,
Hearing of your positive attude in life and seeing your beautiful smile at the hockey games has been an inspiration to me, especially this past year. i enjoy hearing about your life through your mom at the office. All the best to you in 2007!
Merry Xmas to a terrific person
From Renee and Family

I never knew that I make such a positive impact like that in someone's life. My thoughts and prayers will be with Renee and her family, as she has to spend this special time without her husband or her dad.

I hope everyone has a special Christmas this year, and please think of those who have lost either a child or loved one to some kind of illness or tragedy,or those who have to spend Christmas in the hospital. Spend as much time with your family and kids as you can.
My email is: hockeykid@telus.net
My dad's email is: kwfowler@telus.net
My msn messanger: hockeys_life@hotmail.com

Thursday, December 14, 2006 10:04 PM CST

Hi Everyone,
Well It's been a very tough week for me. I am still very sick, from injection I got at the end of November. My doctor gave me a higher dosage this time, and the pain is gone, but I have awful side effects. I am nausiated all the time, tired all the time, and teary eyed.

My friend Ty, had a brain tumor for a long a time and suffered from really bad seizers. Well in the Summer time he broke his leg. Then he kept getting infections. So he recently got an infection and his seizuers got worse, and unfortanatly he passed away this week. He Was a very nice kid, and always had a smile on his face. His funeral is on Friday, which is tommorrow.

I called some friends of ours tonight, because I got a christmas preasent from them, and I wanted to let them know I got it. Well the wife Sherri, just found out yesterday that she has cancer. It is in three places, the Utereus, the Pelvic and I forget the other place. She refused to take chemo, and radiation. So she will be having an histroectemy done, hopefully right after christams. It is full blowen, and if the cancer doesen't spread anywhere else then they will hopefully be able to remove it. Please keep, Devon, Sherri, their kids: Codey 9, Ashley 7, and Kole 4, in your prayers.

On a more positive note, on Monday we had our booster club Christmas party. I got to skate with the Blazers. I had losts of fun. Two guys at a time, one held on to one arm and the other held on to the other arm. They kept switching with other players. My two favourite players were Brady Mason, and CJ Stretch. They are cool guys, and so nice. I was able to get their email addy's so hopefully I made two more cool friends.

Last night, My life skills worker and I, went to a special Country concert. It was to raise money for the food bank. There was five different Country singers the came, it was called the Christmas tour, accorss Canada.
I got to meet on of the Singers, Sean Hogan, he was the most coolest guy, and a good singer. I als like Gil Grand. The other singers were Colin Amey, Samantha ( I forget her last name, and last but not least Jamie Warner.

Well it's getting close to Christmas, I hope everyone has a happy and safe Christmas and New Years.
Anyone who has an AOL email and want to email me, please feel free at: kwfowler@telus.net, Thats my dad's.
Mine is: hockeykid@telus.net
My msn email is: hockeys_life@hotmail.com

Tuesday, December 5, 2006 0:38 AM CST

Hello Everyone,
The last few days, I have been sick, and I still am. I am as sick as I was three years ago. These injections they are giving me, is making me very ill and sick to my stomach. So I am trying to stay positive even though I am sick.

My friend Jared talked to me today on the computer. He is investing money and he said if everything works out, my family and I, will be taken care of. He also said that I won't have to worry about my health anymore, and he means my medical expenceses. He is a very cool guy, and an amazing and good friend. I am keeping my fingers crossed that this works out.

Tonight we had our booster club meeting. We had a bingo for turkeys, an auction and bake/craft sale. At the auction I bought a framed picture of all the Blazer team. Then there was this Blazers light with a clock attached. I bid up to thirty then I stopped cause this guy was bidding higher. This lady told me to put up my hand and others kept telling me to too. So the bid got up to fifty two dollars, and everyone kept comming over to me and putt money in front of me! So I was able to buy the clock. People are so generous, I am so lucky to their support, and Jared's support.

My email address: hockeykid@telus.net
My dad's email: kwfowler@ telus.net
If you have an aol email, please email me at my dad's email addy.
My msn messanger email is: hockeys_life@hotmail.com
My AIM Messanger is: smileyfighter

Saturday, December 2, 2006 0:24 AM CST

Hi Everyone,
I got back from Vancouver BC. Canada, on Thursday. The doctor gave me some more injections for the pain. He gave me some in the head, back, and neck. The ones in the back, made my left arm and hand very weak and painful. The shots also made me sick to my stomache, and I still am sick.

When we were in Vancouver staying at Easter Seal House, I saw some friends, who I haven't talked to in three years. The mom, Julie, has been having a rough time. Her daughter Brittany passed away about three years ago. Then, her daughter Carly got into a car accident, but she is fine now. Julie's best friend died of brain cancer, Julie's boyfriend died of brain cancer, and now her son Jordan, who is 23, got into a truck accident, broke his neck and is now a quaderpalegic. Please keep them in your thoughts and prayers.

My email is: hockeykid@telus.net
My msn account is: hockeys_life@hotmail.com
If you have an aol account, please email me at: kwfowler@telus.net

Monday, November 27, 2006 2:28 PM CST

Hi Everyone,
I hope all of my friends and people who coem to my site, are doing ok. I hope you all had a nice weekend.

I am in severe a hundred percent pain, still. I have no energy, and I am always tired. The pain is pounding in my head. We are off to Vancouver on Tueseday, ( Which is tommorrow.)Vancouver has 12 inches of snow. We have a lot of snow too. Even though I may not be well, I am still my smiling, positive self.

I heard from my bestfriend Jared today. Jared, used to be a hockey a hockey player, a good one in my eye's. He played a few games in LA, in the NHL, before getting injured. Ever since getting injured, he wasn't treated fairly. He has played many years in AHL, for the NHL farm teams. He went this season to play for Tampa Bay's farm team, the Springfield Falcons. I guese he still wasn't getting treated fairly. So now he is back hom in Calgary Alberta Canada, and decided to pursue another career. Jared, and myself, don't see it as quitting or giving up. He is 24 yrs old and he wants to accomplish something, like a career before he gets too old. Jared is not a quitter, he is very much like me. Jared keeps telling me that I am a fighter, and I never give up, well Jared is the same. He may not have an illness, or disability but he has other obstacles in life and he gets through them with a positive attitude. I think Jared made the best choice. It's better to do get out of something if your not happy what your doing or not getting treated fairly. Jared, is my hero and bestfriend and always will be.

Yesterday, I was reading the news paper, and my friend Kelly Smith was in it. Kelly is in his forties, ad became a parapelegic in 1991. He fell off a 50 foot cliff, while rock climbing. The morning after the fall, lying in a hospital bed, Kelly woke up, with a smile on his face, drank coffee, read the paper, and looked out the window and began to dream. Kelly has always had a positive out look on life since his accident. He is one of my hero's, and someone I look up too. I am glad he is one of my friends.

On Saturday, I went to the Santa Claus Parade. It was so much fun. Then, I went to the movie Happy Feet. It is a very cute movie.

Anyways I hope everyone has a good week. Keep warm, cause it's cold out there!
My email is: hockeykid@telus.net
If anyone who has an aol email address, you can email me on my dad's email at: kwfowler@telus.net
My aol messagner ID: smileyfighter
and my msn messanger email is: hockeys_life@hotmail.com

Sunday, November 19, 2006 11:45 PM CST

Hi Everyone,
I am not doing too good health wise. I am in a 100 percent pain. We spent $70.00 for new cream which is medicated, and it is not helping. It's supposed to be stronger then the first cream he gave me. So we have to go back to see him on the 29th. I wish thsi pain would get under control. I am tired all the time, run down, nauseated, and no energy what so ever.

Tommorrow, I am going to an Elementray school, to talk to three different classes. A grade four/five split, five/six split, and six/seven split. It is a school that I atteneded at. I am going to be sharing my story and talk about inclusion and bullying. I hope I can continue to make a difference in these kids lives.

Please keep my friend Jaybear in your thoughts and prayers. She suffers from mild Autism, Mito, and Cystic Fibrosis. She is very ill and is in a coma type sleep. I guese befors she got sick, she tryed to email me, with her mom's help, and I never responded to ehr emails, because I never got them. She now thinks I don't like her, and I really do. I hope she fights through this. I emailed her mom and told her that I didn't get them, and that I still like her, her mom understood the situation. With JayeBear being so ill, it is so hard on her parents, and it is hard on me too, I hate seeing my friends suffer. Please keep her and her parents in your thoughts and prayers.

My email addy is: hockeykidd@telus.net
If you have an aol account, please email me at kwfowler@telus.net
My MSN account is: hockeys_life@hotmail.com
My AIM Id is: Smileyfighter
Thankyou for stopping by, please sign my guestbook.

Saturday, November 11, 2006 0:12 AM CST

Hi everyone,
Well it's been a pretty rough week. I went to Vancouver and I had five injections for my pain. The injections are supposed to help the pain. They only last a week and a half though. My head really hurts, in another spot where the doctor didn't put the injection. He put one in my neck and it burns and really hurts. Then he put one in my head and my right eye, which has been hurting, went totally blind for a couple seconds. I am not feeling well at all. All I have been wanting to do is sleep.

Besides my health problems, I have been having a problem with this one girl. She is in a wheel chair and is very very agressive. It's not that I don't like her, I do, but she doese everything I do. If I meet a hockey player, she has to meet that player. I got flowers from this hockey player two years in a row, and she wrote him a note and told him when her birthday was, and kept asking me what I thought he was going to do for her bday. He didn't do anything as it turns out. Anyways I got to know her mom, and now she had to. I joined the Blazers booster club, then she joined it. Last Monday we had a booster club meeting. I told her the night before that I wanted to mix around and meet new people. So the next night, she told one of the people there that I promised to save her a seat, and I didn't say that. Then when I was in Vancouver, she phoned an left a message on our machine saying that she doesen't want to be friends anymore because I was being rude. My friend was with me, and she said I did nothing wrong. When I emailed my friend Sarah, who is also this girls friend, Sarah told me she heard about the phone call, and told this girl that she shouldn't have did that. Sarah also said that it seems that I turned my back on Stephanie, and I didn't. She also said that Stephanie didn't want to lose me as friend. If she didn't why did she say that then? This is so hard on me, I can't deal very well with preasure.

Anyways please sign the guestbook. Thanks for checking in. If people who have an aol email, and want to email me, please email me at my dad's email address: kwfowler@telus.net
My email: hockeykid@telus.net
My MSN: hockeys_life@hotmail.com

Thursday, October 26, 2006 1:58 PM CDT

Hi Everyone,
For those of you who are wondering how my appointment went last week, well it didn't happen. We drove down to Vancouver last Tueseday. Vancouver is a three to four hour drive from where we live. Well, we went to my appointment on Wedensday and my doctors secutary said, UH Oh, you didn't get my message. I said what message, she said I left one on your voice mail. I said, I don't have voice mail and she read the number, and that was our home number she called. She said that he was viontley ill and couldn't come in. So our next trip down and appointment is on the seventh and eight of November, and I am now in severe pain again. My dad was upset, because we had to pay two nights accomodations, food and gas. Luckily, we stayed at Easter Seal House it only cost us forty bucks for both of us. $20.00 for both my dad and I, which is $80.00 bucks for two nights.

Easter Seal House is a place for adults, children and their families to stay when they have to go to appointments of the hospital. It's like Ronald Mcdonald House, only adults can stay there too. When were down there on one of our recent trips, we met a family who's 21 year old daughter, was going to give birth to two twins, who were joined at the back of the head. Well we read in the news paper, that the mom, Felicia, gave birth to two twin girls, on Wed. at noon. The girls are doing fine. They are joined at the brain, and they don't know yet when the seperation is going to be. Please keep this family in your thoughts and prayers.

I am saddened by the news that our good neighbour on our street and good friend, past away last night. Her son Mel, came to our house this morning to tell us. Her name is Mrs. Stastiuk and she was in her seventies. She was a very friendly and cheerfull person. I am going to miss her a lot. All I have left now, is memories. Her husband, George, is taking it really hard, and is not doing well with it. She did everything for him. Her funeral may be on Wed. I may not be able to go, depending what time it is at. Please keep me, my family, George, and his and Mrs. Statsiuks family in your thoughts and prayers.

Thankyou to everyone for caring and comming by my site.
I may be emailing from my dad's address cause some people aren't getting my emails. My dad's email is: kwfowler@telus.net
Mine is: hockeykid@telus.net
My msn messanger email is: hockeys_life@hotmail.com
My AIM for AOL Messanger is: smileyfighter

Tuesday, October 17, 2006 0:30 AM CDT

Hi Everyone,
Well it's been a busy few weeks, going back and fourth to Vancouver. Two weeks ago when we went down, I saw a pain doctor. He gave me an injection in the head and the pain went away. Some of it is back, but not half as bad as it was. I do have lots of pain in my jaw though and it is swallen. We are going back to Vancouver to see the pain doctor and we will see if he will give me more injections. There are also medicated creams we are going to try to use. The injections they are giving me, I believe are Chortasone. I hate the injections, cause they hurt, but the doctor said that I am a trooper.

I am feeling a bit down. I belong to the Kamloops Blazers Booster and they ahd Pizza night tonight. I got to see my buddies, and talk to them for a few seconds. I sat at at table with my friend Keaton who is a Blazer. Anyways I felt out of sorts. I wanted so bad to go over and talk to this player Alex, but I was too shy. I nam scared how the players are going to recat, cause some are nice and friendly and some aren't. I met Alex, once before, but I still don't know how he is going to react. I see him at the Collisium when he is not playing on game nights. I wish my friend Adam was here. I miss him so much. He is so much fun, and accepts me. He thinks of me as his friend. If he was there tonight, things would have been different.

Well I hope I am not complaining to much. I just wish I had someone to talk to. I have some things going on and it helps to talk about it, to someone other then your paretns.
Please keep my friend Jaye bear, in your thoughts and prayers, as she has been in the hospital over two months now. Also please pray for my good friend Tina. She had a double stroke during the Canadian Thanks Giving. She is in her early fourties and has three kids, ages, 18, 15, and 12. The doctors told her that she shouldn't have survived. She has parylasis on her right side, and can't yet walk.
I went and saw her this past Friday, and she looked rough. She has had two seizures since she was in the hospital, and the doctors have now diagnosed her of having Epilepsy.

Thankyou for stopping by and checking on me. There are new pictures in photo album. My email is: hockeykid@telus.net Anyone that had an aol account,and if you want to email, please email me at my dad's email address: kwfowler@telus.net
My msn messanger is: hockeys_life@hotmail.com

Tuesday, September 26, 2006 11:26 PM CDT

Well these past two wks have been pretty busy. Last week, I went down to Vancouver with my dad. I saw a dentist about my teeth, and he is going to operate on them, and put crowns on them. Then I saw a pain doctor, he gave me a three medication creame that you put lightly on the spot where there is pain and it is supposed to work. The next day we went to a doctor that was supposed to help the pain, but instead, she said that it was my back, neck, and posture causing the pain, not nerve. That is not true, because everyone we have seen before says it is nerve pain. We went and saw a physio therapist that helps with the neveres, and she gave me some exercises to do, to see if the nerves come back.

When we came back Friday, we got a call that I needed to have an MRI done on Monday. So my caregiver, Steve, and I went down to Vancouver yesterday and came back tonight on the bus. Steve went with me to give my dad a break, cause he will be taking me back to Vancouver next week. I did really well today with the MRI. I started to cry when they put the needle in my arm. It was so they could put dye in me. So today and tommorrow I have to drink lots of liquids.
Steve pinched my toes, well they were putting the needle in so my mind focused on my toes being pinched instead of the needle. When I went into the MRI, I did really well. The lady kept asking me if I was doing ok.
Next week we go back to Vancouver to see a nerve doctor, and another doctor that doese chortozone shots.

While we were in Vancouver, we were walking along Granvel street and I saw some very familiar faces. First I saw Brady Mason from the Kamloops Blazers, then I saw "Nixy", Then I saw my good buddy "Jorgy" Then I saw Terrance Delaronde, all from the Blazers. They were there because they were goign to walk down Hastings, where all the drug addicts, bums, and other night people are. They did this, so they can come back to Kamloops and go to schools and talk to the kids about what they saw.

Last Saturday, my friend Jon, invited me out to a Kamloops Storm game. I had so much fun, and they are a good team. Anyways, the Blazers goaltender, Mike Maniago, was there with his girlfriend and a friend I think. Mike and his girlfriend are wonderful people, even though I just met them, but I can tell, just back talking to them that they are super. So I just want to thank them for spending time to talk to me, and I would like to Thank Mike, for letting me have his email address.

I saw Mike's girfriend at the Blazers game on Sunday night, and she stopped to talk to me. I also got to meet his mom, and that made me happy.

Well that's all for now. Thanks for comming by and checking on me. My dad's email is: kwfowler@telus.net, msn ID: hockeys_life@hotmail.com or my email address: hockeykid@telus.net

Sunday, September 17, 2006 0:59 AM CDT

Well Things have been pretty busy around here. I went to the Coummunity Living fiftyth anniversy This past Thursday. Today I went to the Farmers Market, and then to the Community Living day at the park. Then I went to the fiftys sock hop dance.

My pain level is pretty bad these days. Please keep me and my family in your prayers. We have been having a tough time with a surtian situation. I am going to Vancouver on Tueseday for doctor appointments.

Well That's all for now. Please keep myself and my friends in your prayers.
If you have an aol email address please send emails to: kwfowler@telus.net
My email addy is: hockeykid@telus.net
My msn address is: hockeys_life@hotmail.com

Sunday, August 27, 2006 8:55 PM CDT

Hello Everyone,
Wow it's been too long since I updated. I have been busy this Summer. I have been camping three times this Summer and it sure was fun! I am off to Langley BC. Canada tommorrow to visit my cousin, and her eight year old son Isaac. I am staying untill Friday. I am a bit nervous though because I will be taking the bus all by myself. I am sure I will be fine.

I got to see my buddy Mark Recchi who played for the Carolina Hurricanes last year and is now with Pittsburgh. He had the Stanley cup brought here to Kamloops BC. Canada. I was so excited! My dad and I got a picture taken with the cup, and I got to touch it. I also got to meet Andrew Ladd and Mike Commadore of the Carolina Hurricanes. Andrew Ladd was my favourite. He talked to my dad and I about ten minutes. He was even still talking to us, when his golf cart took off. My dad and I went to the Celeberty Charity Golf Tournament that Mark Recchie and Pheonix Cyote Captain Shane Doan put on. That's where I met Mike Commadore and Andrew Ladd. When my dad comes home I will get him to help me put my pictures on my website. I have pictures of my and Bobby Orr, Andrew Ladd, Mike Comadore, Ryan Smith and Rod Stevens.

Yes, Missey, I am so excited for hockey season, and I can't wait! We have season tickets to WHL Kamloops Blazers, so I will be going to their games. Then there is a new junior B team here called the Kamloops Storms. So I will be trying to get to go to some of their games. I can never get enough of hockey.

My friend Reid Jorgensen is going to the Detroit RedWings training camp this year, and my other friend Victor Bartley will be going to the Vancouver Canucks training camp this Summer. I hope they both do very well. My bestfriend Jared Aulin, agreed to a 1 year try out with the Pheonix Cyotes. He isn't going to their training camp this year though, but he will be going straight to there AHL farm team.

Well My pain has been getting pretty bad. There is a ten month wait to get into a pain clinic. When I get into it they will be trying some kind of shot for the pain. I don't want to wait that long though, but I guese I am going to have to. I don't have a choice in the matter. I don't really want a shot but if it's going to help the pain then Im willing to try it.

Please keep all my little friends on caringbridge in your prayers.

My email address is: hockeykid@telus.net I am also using my dads email address right now too, because some email address don't work on my email address, so if you have an aol email address and want to email me please do so at: kwfowler@telus.net
My msn messanger: hockeys_life@hotmail.com
My yahoo messanger ID is: jensrace_inlife@hotmail.com

Saturday, July 15, 2006 11:44 PM CDT

Hi Everyone,
Well it has been a long time since I updated, so I thought I would find time tonight to do it. Two weeks ago, my dad and I went to Vancouver BC. Canada. I had to go see a pain doctor. He perscribed a pain med, but I don't know if I am going to take it. The side effects are tooth decae (which I already have), dry mouth, drys up the soliva, and drys up the bladder. He wants me to see a dentist, because he has operating time at the hospital. My dentist here doesen't have operating time. I have to be put under when they work on my teeth. So we will be going back on September 19, 20, 21, 22, and comming home the 23. I have to see the pain doctor, his partner, and the dentist all on the 20. Then on the 23 I have to see a physio therapist. Then on October 4, I have to see a nerve doctor. The doctor said there is deffinatly nerve damage, and he doesen't think it will ever come back. I also can't eat chewy foods, or steak. which for me is upsetting because I just started eating and chewing regular foods.

My pain is pretty bad these days. My head has been really hurting me. I have also had problems with my eye being sore and burning. My mom said that is dry eyse. So we got some eye drops. I also may have a bladder infection, and I will be getting that checked out soon, like probably next week.

While I was in Vancouver, I met a really nice girl who has a simular problem her jaw, as I did with mine. It's nice to meet someone that you can relate to. She is only sixteen and she had her first majour operation. So I was able to shre my expriences with my jaw, with her. I still keep in touch with her over the computer.

I also met a really nice and wonderfull family while I was there. Tiffany, Wes, and Ally. Ally is really cute, and I think she is about two or three. Her arms flare up and sometimes can't move them. She may also have Celiac disease. They live two hours away from me. It was great to chat with Tiffany, and Ally is such a trooper, and fighter.

I am in restspite now for a month. We will be going camping and stuff. My dad is away fishing/camping, and my mom is going to Trail BC. for a month.

I can't wait untill hockey starts up again. I was very happy that the Carolina Hurricanes one the cup! My friend Mark Recchi plays for them. He will be bringing the Stanley Cup to Kamloops, on August nineth or tenth. I hope I get to have a picture taken of the cup and Mark.

My buddy Victor Bartley got invited to attend the Vancouver canucks training camp in September. My other friend Reid Jorgensen got iinvited to the Detroit Red Wings camp in September, for the second year in a row.

My friend Marvin passed away last Friday. He went out on an outing with People in Motion and he fell down the some stairs. He cracked his head open and went into a coma. He then got pnemonia and passed away. He also struggled with a long battle of cancer. He was only 41 years old.

Well anyways I should get going. I hope everyone is doing well. My email address is: hockeykid@telus.net My msn messanger email is: hockeyslife@hotmail.com, my Yahoo messanger ID is: jensrace_in life. My AIM ID is: smileyfighter.
I hope everyone has a good rest of the weekend and a good week.
Godbless,
Jenna

Tueseday, May 30, 2006 0:07 AM CDT

Well it's about time I update the journal. It's been a pretty crazy week the past couple of weeks. We have had something we had to deal with so that took abit of our time. Please keep my family and I in your prayers as we need them right now.

I have been having lots of pain in my head lately. Really bad pain. I am going to the dentisit tommorrow. He is going to fix my teeth. He will start with the bottom first this time, and it will be a two hour appointment. I am not looking forward to it because I will be in a lot of pain afterwards in my jaw and will need to go to therapy for it. I am actually supposed to have it done a sleep but there is not away seeing as my dentist doesen't have hospital time, and the private clinic costs too much. So the only way is doing it awake and being in pain afterwards.

I went and talked at another school today, about inclussion and bullying. I did very well considering I had a very bad headache. I think I inspired the kids and impacted them in a positive way. I got a great response from them.

Anyways that's all I have to say tonight. My aim messanger name is smileyfighter
my msn messanger email is: hockeys_life@hotmail.com
My email is: hockeykid@telus.net
Please keep me in your prayers and thankyou for checking in on me.
Jenna

Friday, May 5, 2006 6:59 PM CDT

Hi Everyone,
This week has been a real difficult one. Last week, my phone rang, and I was running to get it, and my shirt got caught on the railing and I flipped down ten stairs and smacked my head real hard on the floor, and sprained my foot. My foot is better now, but since I smacked my head, I have been in unbareable pain. My mom thinks it may just be bruised. I may have to go to the doctor to get it x-rayed. I just haven't been my cheerry self lately because of the pain. It's very frustrating! I wish I could talk to someone who understands, what I am going through, and knows what it's like to have a serious illness. It's been very difficult for me. I try as much as I can to have a very positive attitude towards things, but sometimes it is so tough.
Anyone who would like to email me, can at hockeykid@telus.net or hockeys_life@hotmail.com
Thanks for comming and reading my story and checking on me. Please sign the guestbook, as I really need encouragement right now. Please keep me in your prayers.
Jenna

Tuesday, April 25, 2006 0:43 AM CDT

It's been along time since I have updated. Ever since I got back from Vancouver, seeing the doctors, my pain in my head is worse. There is so much preasure. I can't handle the pain, but I guese all I can do is stay strong, stay positive and keep smiling. I am having a tough time though and getting a bit frustrated with the pain.

I had a great Easter. I went to respite on Good Friday and Saturday and came home after church on Easter Sunday. I got lots of chocolate, that will last me awhile.

Bowling is now over. I will be starting to play T-Ball this Wed. I have never played it before so I hope I like it. I have been busy watching the NHL play-offs. One of my favourite teams, the Calgary Flames are in it.

Well I have to volenteer at the daycare tommorrow so I have to get going to bed. I hope everyone has a good week, thanks for visiting me, and please sign my guestbook.

My MSN Messanger email is: hockeys_life@hotmail.com Anyone who wants to, can feel free to add me to their list, cause I love meeting and chatting with new friends and people. My email address is: hockeykid@telus.net
My yahoo messanger ID is: jensrace_inlife
Jenna

Thursday, April 6, 2006 8:01 PM CDT

Hello Everyone,
Well we had a successfull trip down to Vancouver. My mole turned out to be cancer free! It is growing though so it has to be removed because it could become cancerous. The doctor I saw from my nerves was very hepful. We have to go back soon, because she wants a bunch of nerve tests done, and she wants me to see her pain team so that maybe we can lower my pain level and get rid of some of my heavy duty pain meds I am on. They may need to also operate on my brain to take care of some of the nerve pain.

My dad and I had a great time in Vancouver. We went to the best Sushi place for super, and we pigged out. Then we went to the Mongolian Grill one night for super. On Monday I went to visit friends of mine and had a great time. We met this guy at Easter Seal House who is six foot eight. He is a really nice person and is 24. I also met a a little girl name Kyra, and she is a cutie, I became friends with her and her mom.

When we got home I had a birhtday presant waiting for me, from my bestfriend Jared. It was a Hershy Bears Jersey with his number and his last name on it. I love Jerseys! He plays for the Hershey Bears which is the Washington Capitals farm team.

Anyways I have to close this because I have to go to my cousins concert.
My msn messanger email is: hockeys_life@hotmail.com
My email is: hockeykid@telus.net

Saturday, April 1, 2006 11:58 PM CST

Hi Everyone,
Well I had a pretty good and week. My knee is bugging me alot lately and it is really really painful to walk on. I am going to Vancouver tommorrow with my dad. I have to see some doctors. I will find out whether I have skin cancer or not. Please keep me in your prayers.

I had a great birthday! It was fun and I had a great time and got some cool presents. I went out for lunch with my life skills worker and a couple of friends. Then I went out for super with some other friends. Then we came back to my house and sang in my Kareoke machine that I got for my birthday, and had some cake.

I am now volenteering in a daycare. It's a home daycare, and last week was my first day there. I enjoyed it, and the owner of the daycare is a really really nice and super lady. She has a daughter who specialneeds and she is really helpful, and I feel comfortable there.

I went to the Beach Boys concert with a friend and I had a great time. It was lots of fun and I enjoyed myself. We went out for super before the concert to Boston Pizza.

Well that's all for now. Please keep all my caringbridge friends in your thoughts and prayers. My msn messanger email is: hockeys_life@hotmail.com My email is: hockeykid@telus.net
Jenna

Saturday, March 18, 2006 11:36 AM CST

Well it's been awhile since I did the journal. I am doing alright. Everytime I eat, I am sick to my stomache. We aren't too sure what is causing it. I have been having problems with the pain in my head. I am going to have the operations on my teeth pretty soon. We had to have it done in a private surgical clinic. The only thing about that is, that it costs seven hundred dollars an hour and I have to have at least four operations.

I am doing talks on inclusion and bullying in schools. I just recently talked at the university in a Community Support Workers Class, and it went really well.

I am excited because my birhtday is on the 23 of March, which is Thursday. The doctors never thought I would make it this far. My buddy Jared called me this morning and I was very happy to hear from him. Usually because he is so busy playing hockey, I never hear from him for months.

Well That's all for now, I have to go get ready to go to Salmon Arm. We are going to spend the night at my aunts.
My email: hockeykid@telus.net My msn messanger email is: hockeys_life@hotmail.com I hope everyone has a good weekend and a good week.

Monday, February 13, 2006 8:02 PM CST

Hello Friends,
My toothache is now back. I can't even sleep much because of the pain. I wish the pain would just go away and not come back, but for some reason it doesen't. So I just have to be strong and fight it. I was in tears all day Sunday, because my stomache hurt and my tooth. I woke up at four in the morning in severe pain, and my aunt happened to be to get ready for work and she gave me two tyonel and it helped the pain abit.

My trip to Calgary was great. On Thursday, we got into Calgary at about three O clock, and the time we got into Strathmore was about four. I visited with my cousins and I called my friend Leah, in calgary to come get me. When she got to my aunts and uncles she stayed and visited for about a half hour or so then she and I drove to Calgary. We went to Moxie's for super and she payed my way which was very nice of her.

On Friday, we went shopping, then to the Calgary Tower. I also got to go to the Flames and Blues game. I had one awesome night at the game. This guy and his friend were sitting beside my friend Leah and I. One of them, (I think his name is Willie) got free tickets from the refs because he took them snowmobiling. During the intermission my friend Tracey's husband Steve came down to meet me. Steve is an electrition for the Flames. Steve gave me some stuff from Tracey. I got an Olympic hat, socks, poster, chocolate, a news paper article of Jarome Iginla and Joel Otto. I got a little signed picture of Joel Otto when he used to play for the Flames. At the end of the game I got a hockey stick signed by Shawn Donavan. Willie also gave me a game puck. Willie and his friend were on the list to go downstairs. So his friend told us to come down with them and get some autographs. So Leah and I got to go downstairs and meet some of the players and got autographs. My favourite player I got to meet was Dion Phanuef. He took the time to talk to us and visit with us for a couple minutes. I also got to meet, Shawn Donavan, Andrew Ference, Richie Byron, Richie Regher, and Robyn Regher. I also got to see Jarome Iginla, and he talked to me a few minutes.

A big Thankyou to Willie and his friend for taking us downstairs so we could meet the players and get autographs. It was the time of my life, and I am sure it was Leah's as well. Willie, if you see my site, can you please sign my guestbook and write your email down for me.

On Saturday, Leah and I went to Walmart. Then her brother Ryan and girlfriend Amanda came over and met me. We all went to Moxie's for lunch, then my uncle and dad came and got me and we went back to Strathmore to a wedding. The wedding was fun.

Then on Sunday, my cousin Cassie and I went out and had a girls day out. We went to Walmart and to Macdonalds for lunch and went grocery shopping. Then my cousin Shawn, his wife Kim, and little boy Nicholas came to visit us. I sure had a fun trip.

Well that's all for now. I hope everyone has a good week. My email is: hockeykid@telus.net, My msn messanger email is: hockeys_life@hotmail.com

Thursday, Feb.5th

It's been awhile since I updated. I have been doing alright. I have been suffering from majour headaches lately. My toothache is not bothering me anymore. Other than that things are going alright. I might need an operation on my lip becauase of my drooling and nerve damage. I am going to see a doctor about that in April.

I am in Calgary Alberta right now. I am staying with a friend of mine, Leah. We are going to a Calgary Flames game tommorrow night. I am staying with Leah for two nights. Then On Saturday I will be going to stay with my aunt and uncle and cousins. On Sunday I might get to see my buddy Luky. The Monday I am going home.

Well that's all I have to say. My email is: hockeykid@telus.net MSN: hockeys_life@hotmail.com
I hope you all have a good weekend.
Jenna

Wedensday, January 26, 2006 0:06 AM CST

Hi friends,
Today I had my tooth pulled. I was told that I would be put out for it, but they didn't put me under. It was a painful experience and I was in tears. The oral surgeon said I was the most helpful paitent he has ever had. He also said that I am a trooper. My tooth really hurts now, worse then it did when it was in. Nothing is helping for the pain. Hopefully it will settle down in a few days.

One of my hockey hero's and hero's in life, retired from hockey this week. He is my hero because he has been through alot. He fought his battle against cancer, (Non Hodgkins Lymphoma.) He now has a serious heart condition. I look up to him and when I am struggling, I think of him. I also think of all my brave friends who are struggling and fighting their battles against their illnesses.

Well that's all I have to say tonight. My email is: hockeykid@telus.net My msn messanger email is: hockeys_life@hotmail.com My yahoo messanger is: jensrace_inlife
I hope everyone has a good rest of the week and a good weekend.
Jenna

Monday, January 23, 2006 0:40 AM CST

Hi friends,
I am still having difficulty with my tooth. I went to the dentist last week and had a route canal done. It still hurts pretty bad. If it doesen't stop I my need to get it pulled or something. It's really hard to cope with the pain. On Friday I went to a restaraunt to get my friend a gift certifacate for his birthday and I didn't see the glass door and I smacked into it pretty hard and bruised my nose. So that hurts now too.

I just want to say thanks to my friends Jay and Adam for talking to me tonight on msn and giving me encouragement. It helps when you have amazing friends to help you through rough and tough times.

Well that's all for now. My msn messanger email is: hockeys_life@hotmail.com
My yahoo messanager is: jensrace_in life
and my email address is: hockeykid@telus.net

Sunday, January 15, 2006 5:48 PM CST

This week has been pretty rough on me. I have been in so much pain. My tooth is really bothering me and none of my meds I take for it, take it away. I can't even sleep at night, it is so bad. I am also getting a really bad chest cold, and cough.

During the Christmas hollidays my friend Adam, was here. He got called back to play on the team because some of the guys were injured. I got to see him, and that was fun. He's one of my best friends, so it makes me happy when I see him.

Thankyou for visiting my site, and please sign the guestbook.
My email is: hockeykid@telus.net My msn messanger email is: hockeys_life@hotmail.com
GodBless you all,
Jenna

Friday, December 30, 2005 0:05 AM CST

Well It's been awhile since I updated. I hope everyone had a very good Christmas and a Happy New Year! I had a great Christmas. Christmas Eve, my mom, dad and I went to my aunty Debbie's and Uncle Tom's place. Auntie Debbie cooked a turkey, with all that other stuff that goese with it. I also spent time with my eleven year old cousin Allison, and her sister Kristy.

Then on Christmas day we went to my Auntie Shelli's and Uncle Mike's place. My grandma, my Auntie Charlene, and Uncle Jim from Salmon Arm were also there, as well as my cousin Mike, his wife Jen, and their one year old boy Mikey. So it was a very nice Christmas spending it with family.

For Christmas I got a digital camera, a photo printer, Clothes, Care Bear Checkers, a Glow And The Dark Care Bear, and an NHL Monopoly game.

There is a hockey tournament going on right now in BC. Called the World Juniors. Which is all the teams from different countries compete for gold, silver and bronze. We have got tickets for all six games that are playing in our City. I have been cheering for Latvia, and Sweden so far. Latvia, is a new young team and they haven't one a game yet. Canada plays all their games in Vancouver and they have won all of their games so far.

My buddy Adam got recalled back to Blazers. I am so happy! I just hope I get a chance to see him before he gets sent back home. He's a great guy and I have missed him so much. He got recalled because we have so many players injured. So I am sure once they are back playing that he will get sent back home. He's doing good though. He almost scored tonight and the other night.

Well nothing new is happening with my health. I am still in a hundered percent pain. My pain meds are causing me to sleep lots and it causes me to be nauses all the time.

Well Happy New Year to you all. My email is: hockeykid@telus.net
My msn messanger email is: hockeys_life@hotmail.com
and my Yahoo Id is: jensrace_inlife

wensday nov30, 2005 0:15 AM CST

Hi it's about time I do an update. Things have been going ok. I am still having lots of pain in my jaw and my head. Apparently the pain in my jaw is muscel spasms, and they are pretty bad. The cracking is the disk rubbing against the cartlage. From now on when I get my teeth fixed I have to be put a sleep. I can't be awake, because it puts more stress on my jaw.

I have abnormal moles, and they are prone to skin cancer. One of the signs that can be skin cancer, is itchiness and change of size around the mole. It is really itchy around one of the moles, and it has gotten bigger. I keep wanting to itch it, but my dad tells me not to because it might get infected. We have to go and get it checked out soon.

I have been going to aqua fit twice a week and I enjoy it. Yesterday, I went to my Boccai Club Christmas Banquet, and it was alot of fun. We went to East Side Mario's for dinner and then we had a gift exchange. Today, I went bowling with Special O and I got 151 and 143, both my highest scores ever. I made Christmas Cookies with my life skills worker and tommorrow we are going to decorate them.

My parents are building a basement suite for me in our basement. I am getting excited! I went out and picked out my own colours. I went and looked a boarder for my room today and I picked out a galaxy one, which is planets, and rocket ships and stuff. The suite is looking really good. I will still come up and have meals with my parents but at least I will have a little place of my own.

I am still going to hockey games. My friend Reid who is the captain of the Blazers broke his jaw. His mouth is wired shut. So he will be out for a long time. My friend Kalvin got traded to a team that plays against us often so I will get to see him play more. They play us Friday night so I will be cheering for both teams. The Blazers aren't doing to well this year. They are in fourth place, but I hope they win more. The Canucks won tonight, 4 to 2 against the Colordao Avalanch so I am very excited about that.

Well that's all for now. My email address is: hockeykid@telus.net My msn messanger account is: hockeys_life@hotmail.com My yahoo messanger ID is: jensrace_inlife
Godbless and I hope you all have a good rest of the week and weekend.

Friday, October 28, 2005 4:23 PM CDT

Hi Friends,
Things haven't been going good with my jaw. I am having a difficult time with it. It is very swallen and very very painful. It is very difficult to move it and eat. I am now on a new med that is a strong pain med. and antiamflamatorie to see if the pain and swelling will go down. I emailed my doctor in North Carolina. He is going to be moving to Dallas Texas, in January. He wants a radiograph to make sure that the disk has not moved or that something is broken. There is a pain clinic in Vancouver BC. Canada, and we got a referal for it, so hopefully they will be able to help in some way, because they deal with facial pain. The pain is so bad that I am in tears alot. I am in need for some encouragement right now, as it's rather frustrating and very painful. I don't ask for prayer much for myself, but can you please pray for my jaw, pain, and that there is nothing seriously wrong with it.

My friends in Montana, have come up with a non profit organization called Circus Remedy. They will be taking a circus to Childrens Hospitals all over Canada, the States, and Europe. They would like me to come along to some of them and speak and I can also see the Circus. I think this is a wonderful idea that they are doing this. It was all my friend Anthony's idea.

Hockey is the only thing right now that is helping with the pain. If I am not at Blazers games, I am usually on the coach watching hockey on tv. My friend Kris Versteeg, got traded from the Blazers yesterday. We just got him too. Another player along with him also got traded. We got another 20 year old for them. My friend Vic, is out with a cuncsion.

Well that's all for now. I hope that everyone has a good weekend. My email address is: hockeykid@telus.net
My MSN Messanger email is: hockeys_life@hotmail.com
Yahoo Messanger ID is; jensrace_inlife

Monday, October 10, 2005 0:23 AM CDT

Well it's been awhile since I have updated. Last weekend, I was at a conference and my jaw decided to crack. All I did was slightly move my jaw and it decided to crack. Since it cracked, my jaw has been very painful since. It also swallen. I have been going to physio and that has helped. My back teeth have been bothering me. My head has also been bugging me as well.

My bestfriend Adam, who is in the picture on the front of my website, well he was part of the Blazers. I guese they didn't need him this year and they sent him home. I am very upset over this. I will alaways be in contact with him, it will just be harder now that he's not here in Kamloops. He is an awesome person, awesome friend, and a special person. I know that I am really going to miss him. He gave me three hugs and at least I got to say goodbye so that helped. I am really going to miss him. He treats me like a real true friend. I told Adam that he will alaways be my hero, and he just put arm around me and said, no Jenna, you are my hero.

At the Conference I was at there were this group of four guys, called the Extreme Kindness crew. They go around all over Canada and the states, and do random acts of Kindness. I had the pleasure of meeting all four guys and they are all awesome. They also came here to Kamloops this past week and so I had the pleasure of seeing them again. Eric, and Brad were the only ones there the other two guys were busy back home. Eric got to meet my mom and he told her that she had a wonderful young lady.

Well hockey seasons here and I am so excited. In Feb. I get to go to a Flames game. I convinced my parents to let me go to Calgary all by myself. I have a friend there who is going to take me to a game. I am pretty happy about it, but im a bit scared cause I have never traveled alone by myself before. Now all my dad and I seem to watch on tv is hockey. My fav. teams I like to watch are the Canucks, Capitals, Cyotes, Penguins, Flames, and the Kings. I also like watching the Wilds play. My friend Missey got me into them!

Well that's all. My email address is: hockeykid@telus.net
MSN Messanger: hockeys_life@hotmail.com
Yahoo Messanger: jensrace_inlife

Wednesday, September 21, 2005 11:45 PM CDT

Well, it's about time I did an update. I have been in so much pain lately. Besides my head hurting, I had a filling done on my teeth yesterday and some other work done. So now I have a sore tooth, and a very sore jaw. I have to have more work done on them. Tonight I had a really bad stomache ache. I have also been battleing really really bad nausea. My hockey buddy Adam, keeps telling me to keep positive and to keep being strong, which I try really hard to. Adam is the guy that's in the picture with me, on the front page.

I started special Olympics bowling today. I had lots of fun and I just so happen to be on a team with a group of friends. Boccai also started this week on Tueseday but I didn't go this week because I had my teeth done. My scores were 105, and 88.

On Sunday my mom and I went and got our season tickets for the Kamloops Blazers. To my surprise the whole team was there. I went up to Adam, and started talking to him. I told him that there was two players I wanted to meet and he asked me who they were. I told him, and the next thing I knew, he called them over to us. Victor and Keaton are both awesome!!! Victor asked me if I wanted a tour of the dressing room, and of course I said yes. Adam came and asked me if I wanted a puck and he gave me one. I also got Victor and Keaton's email address, so I now have two more cool and awesome hockey buddies. I have four friends and four favourite players who play for the Blazers. Adam, gave me a tour of the press box too. Victor, and Keaton both started conversations with me. Thankyou Victor, Keaton, and Adam, for making my day a great one! The Blazers start their season on Saturday and Sunday, and I can't wait. Adam's parents are in town this weekend, and he wants me to meet them so I told him I would go downstairs, after the game so that I could meet them. Adam, is getting his truck this weekend and he said that one day he will have to take me for a ride in it.

I have a very very special prayer request. My friend Brandon's tumor is now growing again. Please keep him and his family in your prayers. He is an awesome and brave kid who has to fight this horrible disease. If you would like to drop by his site and say a few encouraging words in his guestbook, his site is: www.caringbridge.org/va/brandonh

Thankyou for stopping by my site and checking in on me. My email is: hockeykid@telus.net My MSN Messanger email is: hockeys_life@hotmail.com
My yahoo id is: jensrace_inlife

Thursday, September 8, 2005 1:12 AM CDT

I am not doing to well with the pain. It is very very severe and today I had a really bad headache. Nothing seems to be helping it. I am really frustrated with it and I wish all the pain would go away. I am trying to be as positive and as strong as I can be, but at times it is tough. I need abit of encouragement right now.

I want to thank those of you, who offered to send me a bracelet, as I love collecting them and I wish I could collect lots more.

Today, I am very upset, because my friends Kalvin and Kris, who play for the Blazers, got traded this morning, to Lethbridge. They are my fifth friends who got traded from the Blazers. I am afraid that I will lose contact with them, because three of my other friends who got traded, lost contact with me and didn't have anything to do with me after they got traded. So I am afraid that I will lose Kalvin and Kris as my friends. I guese that's what happens when your friends with hockey players. I just have to be prepared for it when times like these come.

I went to the ear, nose, and throat specialist today. He cleaned my ear out cause it was full of wax. He didn't get all of it out yet, so we have to put oil in my ear everyday and I go back to him on the 21st. He is going to give us a referl to a doctor in Vancouver who doese reconstruction of the lip and mouth. Since my jaw operation, I have nerve damage, and I am drooling uncontrollably.

Well that's all for now. My email is: hockeykid@telus.net
My msn messanger email is: hockeys_life@hotmail.com
My Yahoo Id: jensrace_inlife
Godbless you all and I hope you have a great weekend.

Wednesday, August 31, 2005 8:08 PM CDT

Today, I am feeling a bit down. I think it's cause Im in a lot of pain. My jaw and head hurt alot. I wish the medication would help my head. It's so frustrating at times and diffucult.

I am having a good time, at my aunts and uncles. We went into Castlegar today to see my cousin and her two year old daughter. We went to Mcdonalds for lunch and then back to my cousins place. Tonight we are going to see a documentry on penguins.

Last week I visited an ears, nose, and throat doctor. My left ear was so plugged with wax that he couldn't get to it. So now we have to put oil in it one a day and go back to him on the eight of Setember. We also talked about my drooling and that ever since I had the jaw operation, I have been drooling non stop. He said that there is a doctor in Vancouver that doese full reconstruction of the lip. Before we go that root though we have to see and watch how much I drool.

I am collecting bracelets right now and so far now I have eight of them. My favourite ones are the Live Strong, Never Give Up and a Leukimia one. I wear them all the time.

Hockey season is just around the corner! I can't wait, I am so excited. The first Blazers game is on September 24th. All my buddies are in town for it. My buddy, Kris is going to the Calgary Flames training camp, and my buddy Reid will be going to the Detroit Red Wings training Camp.

Well That's all for now. My email address is; hcokeykid@telus.net
My MSN MESSANGER EMAIL ADDRESS IS: hockeys_life@hotmail.com
and My yahoo one is: jensrace_inlife
Godbless,
Jenna

Monday, August 29, 2005 0:41 AM CDT

Well It's about time I write another update. I have had a very busy week. I just got home from restspite on Sunday. I had a good time, considering that it was the first time I stayed there. They have four kids, ages nine, six, four, and one. So it was a very busy house. The kids are very cute kids. Tommorrow I am off to Trail, BC. with my mom, to visit, my grandma, aunt, uncle, and my cousin and her husband, and daughter. I may even get a chance to see my friend Katie, who lives in Nelson.

As far as my health goese, I have been having lots of head and jaw pain lately. The new meds, I was on, made me a zombie and made me sick, so they took me off it, and put me on a lower dosage. The lower dosage doesen't make me sick, but also doesen't take the pain away. Today, I had a really really bad headace and it made me sick to my tummy.

Well that's all I have to say tonight. Please keep all of the caringbridge kids, and adults in your prayers. My email address is: hockeykid@telus.net
MY MSN Messanger Email is: hockeys_life@hotmail.com
My Yahoo ID is: jensrace_inlife
Godbless you all and I hope you all have a good week.

Friday, August 12, 2005 3:00 PM CDT

Hi Everyone,
Well it's been awhile since I updated my page. Things have been going all right. I am on a new med now, still OxyCodene, but long lasting and slow releasing. Some good news, is when Im on it, it takes most of my pain away, but some not so good news, is that it makes me very sick and a Zombie. But I am willing to keep trying it for abit, because it feels good not to have most of my pain. It's a hard thing to deal with, either do without pain or do without being sick. I also sleep alot when Im on this med.

Last Thursday there was a golf tournament here in Kamloops. It's called the Shane Doan and Mark Recchi Charity Classic. For those of you who don't know, Shane and Mark are both NHL Hockey Players. Shane is the captain for the Pheonix Cyotes, and Mark now plays for the Pittsburgh Penguins. I know both guys pretty good. Every year they come to Kamloops and have a charity golf classic to raise money for sick kids in Kamloops. Every year a bunch of hockey players in the NHL get together for it. My dad took me to the golf course on Thursday. I got to see Shane again, and Mark too. I talked to them and showed them both my medal. I got to talk to and meet, Ryan Smyth from the Edmonton Oilers, Chris Beach from the Pittsburgh Penguins, and Tyler Bouck from the Vancouver Canucks. The guy I really wanted to meet was Ryan Smyth.

Then on Saturday night there was an hockey alumini game. I went with my friend Taryn. I took her out for supper at Kelly O Bryans, to celebrate her graduation from high school. Then after supper we walked to the arena. We sat behind the players bench. My bestfriends Jared, who plays for the Washington Capitals, and Ajay Baines who plays for the Norfolk Admirals, were both playing in the game. Jared gave me a hockeystick signed by all the pro's. On the stick Jared wrote, To Jenna, "Dare To Dream."

I have had a very busy week this week. I now have a life skills worker who works with me everyday for six hours a day, from ten thirty to four thirty. It's fun, it gives me something to do so I am not at home all day on the computer.

I am going to restspite again for a week at my friend Steve's house. His kids are here for two weeks, so he asked me to come and stay with him for a week and spend time with the kids. Amanda is fifteen, Tanya is fourteen, and Jesse is eight. Then there is Stephan who's Steve's wifes Rhonda's son, and he is fourteen.

Then on the 21st I come home from Steve's. On The 22nd, I am staying with another family for a week. They have four kids, between the ages one and nine. I have never stayed there before so I am sure it will be an experince. Then at the end of August, my mom and I are going to Trail to visit my grandma.

Well That's all for now. Please keep Carter in your prayers. My email address is: hockeykid@telus.net I love recieving emails so please feel free to email me. Also my msn messanger id is: hockeys_life@hotmail.com Those of you who have msn messanger and would like to add me to your list, feel free to. Also my yahoo messanger id is: jensrace_inlife

Thursday, August 4, 2005 1:10 AM CDT

Hello Everyone,
I have been having a tough time with the pain lately. My meds have been causing me to have severe stomache pains. The meds help my head pain a little bit, but they don't take them totally away. When I get these severe pains in my stomache, it makes me sick to my stomache, and very difficult to breathe. I am going to see a neurologist on Friday, to see if he can help with my head pain.

This past weekend I went to a Family reunion in Salmon Arm. I had tons of fun. We played Boccai Ball, and I got to meet some of my relatives that I never met before. I also got to see my cousin Kaitlynn. Her and I are like two peas in a pod. My aunt said that we should have been sisters. We look a like, and we have alot of things in common including hockey. We had alot of fun together.

It's nice to see that my relatives are concerned about me, accept me, and care about me. On Saturday, I was really sick with bad stomache pains. My dad's cousin Bob, went and got some cheese, and meat for me to see if it would help, but unfortanatly it didn't. I cried hysterically because the pain was so bad, and everybody was so concerned, and caring, it's a nice feeling when people care about you.

I have an update on Carter. He woke up from his coma, but because of the brain damage, he didn't know where he was, or what happened. He even pulled his caffater out and started screaming. They had to tie him up to the bed, and give him stuff to make him sleep. Please pray for a miriacle for Carter.

That's all for now. My email is: hockeykid@telus.net
My MSN Messanger is: hockeys_life@hotmail.com
My Yahoo ID is: jensrace_inlife
Godbless,
Jenna

Thursday, July 21, 2005 11:06 PM CDT

Well I had a great time in Nanimo. I particapated in the BC. Disability games. I competed in Boccai Ball. It was my very first time in the tournament and I got a bronze medal, third place. It was awesome, and I even beat my own team mate for the Bronze!

I met some really neat people and Boccai champs. Josh, is one awesome player and is from Ontario. He has been playing for ten years and is going to Argentina for the worlds.

This guy named Paul is an awesome Boccai player as well. He has been playing for fourteen years and went to the Paraplympics in brought home a gold medal. He is one awesome and nice person and I am keeping in touch with him through email.

I met this girl Heather who I played for against the silver and gold and lost. Which was ok cause I tryed my best and I won the Bronze instead! She is one good player and a very nice person. She is the same age as me.

My best friend Mike, who I have known since I was three was there as well. It was so good to see him, cause I haven't seen him since two thousand.

I have a very important prayer request to ask you all to pray for. My friend Tracey's nephew, Carter, was in a bad car accident. He is 25 or 26 and is in and out of a semi coma. His arm was all twisted, and he almost lost a ear. Please keep Carter and his family in your prayers.

As for me I have been sick, ever since I came back home. I think it's all the medication I am on for the pain. It is making me like a Zombie, white as a ghost and wanting to sleep all the time.
Well that's all for now, thanks for stopping by.
My email address is: hockeykid@telus.net
My Msn ID is: hockeys_life@hotmail.com
My Yahoo ID is: jensrace_inlife

Sunday, July 10, 2005 10:22 PM CDT

Hi Everyone!!!!!!
Well it's been awhile since I have updated so I thought it should be about time. I have been doing pretty good actually. The pain is still pretty bad, and I have my good days and bad days, when I am not feeling well, but I still have my positive attitude and that's not going anywhere! My doctor in North Carolina emailed me recently and told me that my pain will never go away and I should always have it. That wasn't something I wanted to hear cause I can't live with this head pain for ever. I am now taking some of my meds like I should be taking, cause before I never took them all the time, and now I am on the right track. Even though 26 pills a day are alot to keep count of.

I have been having fun with the family that I am staying with. We went camping this weekend. It was my first time camping out in the tent. We got to go bowling, watch a movie, go swimming in a pool and a hot tub. We also roasted marshmellows and watched a movie.

On Wed. I am going to a boccai tournament in Nanimo. I am very excited. I can't wait! Well I am going to go now. I hope you all have a nice week. For those of you hwo would like to email me, my email is: hockeykid@telus.net
For those of you who would like to add me on to your msn messanger my email for that is: hockeys_life@hotmail.com
My yahoo messanger is: jensrace_inlife@yahoo.com
Godbless,
Jenna

Monday, June 20, 2005 6:03 PM CDT

Hi Everyone,
Sorry that I haven't updated in awhile. I haven't been feeling that great. My headaches have gotten to the point where I can't stand them. I have been sleeping lots. I just wish these headaches and pain would go away!

Last weekend I went to relay for life. My dad volenteered there, so I went there with a friend. My dad is a cancer survivor. He has had cancer three times. When I was five, the doctors gave him a week to live and sent him to Vancouver. Since then he has had cancer twice more, and so far he has been in remisson for two years now. He is my hero! I got to walk with him in the survivor's walk. He told everyone he talked to that I was a survivor too, just a different kind of survivor. I never looked at it that way before. I walked in honnor of my dad, and in memory of my six friends who past away to cancer.

On Thursday, I went to Vernon, and I sat on a pannel. It went really well for my first time being on a pannel. People even asked me for my website. So I thought that was pretty cool. the topic for the pannel was, It's not about you.

I am now in restspite for a month. For those of you who don't know what is restspite is, it is where I stay with a family, while my parents are away on holidays. The first family that I am at right now for a week, have three kids. Courtaney is almost 17, Bryce is almost fifteen, and Mac is almost 11. They treat me like part of their family and that's always nice. I love it here, even though I must admit, I miss my mom and dad. The wife's name is Tina, and the husbands name is Clayton, Tina is my Boccai Manager and Clayton is my Boccai coach.

I will be staying with another family for three weeks, starting June 26th. They have one son, Steven, who is eleven or tweleve. We will be going camping, and they have a trailer on the Shuswap. There is a pool there, and two lodges, one for kids only and one for adults only. They are looking forward to having me, and I am looking forward to going, just like I was looking forward to staying at the family's house that I am staying at right now. The husbands name is Steve, and the wife's name is Rhonda. Steve, is also my bocchai coach. This will be my first time staying at Steve and Rhonda's so I am a little bit nervous.

My mom, is in Trail, BC. Canada, visiting her mom, (my grandma.) She will be gone for a whole month, and is comming back on July 22. My Aunt and Uncle, who also lives in Trail is gone for a month to tour around Isreal. So my mom didn't want my grandma to be by herself, so that's why she went to spend time with her, and keep her company. My dad loves to go fishing in the Summer, so he will be gone off and on.

On Sunday, I was a little disapointed that I didn't get to spend Father's day with my dad. I got to phone him though and wish him a happy Father's day. He was very glad to hear from me. I got to spend the day with Clayton. I call Tina, and Clayton, my second mom and dad, and my second family. The kdis made breakfast in bed for Clayton, and gave him his gifts. Then we all went to church. After church, they had two sets of families over to have a father's day lunch. Then I went and had a two hour sleep, because of my headaches. Then we went to the evening service at their church.

Today, which is Monday, I didn't do too much. I just phoned my dad, and talked to my friend Sarah on the phone. Then because of my headache, I went and layed down for awhile, but my headache is still there.

I will try to get on the computer more often to update my website. All though, now that I am in restspite, I have to share the computer, so I may not get lots of time to update, but I will try my best, plus now that I am in restspite, I am sure that I will be busy sometimes, doing stuff and having fun.

Well I hope you all have a good week. Please sign my guestbook, as I love to read all the encouragement and it helps put a smile on my face. If anyone has msn messanger and would like to add me to their list, my email is: hockeys_life@hotmail.com My yahoo messanger ID is: jensrace_inlife My email address is: hockeykid@telus.net
I love emails and I will email you write back if you email me.
Godbless you all,
Jenna

Tueseday, June 7, 2005 1:15 AM CDT

Tonight my dad got back from Vancouver. He had to take his friend down to Vancouver to see the doctor. They stayed at Easter Seal House, which is like Ronald Macdonald House, only it's for children and adults to stay. Anyways while he was there he found out some very sad news. My little buddy Jonny passed away last month. He was only seven and has battled cancer since he was two years old. I was really close to him, and so I am very saddened by the news.

I am doing ok. Pain wise I am in severe pain, and I have to take extra meds that make me a zombie, and tired all the time. I have been getting jaw pain lately and my jaw seems to be tightening up. It is probably because I have been eating alot of stuff like steak, and corn on the cob. It feels good to be able to eat that stuff again.

Well That's all I have to say for tonight. If anyone wants to email me or add me to one of my messangers feel free to.
My email is: hockeykid@telus.net
My Yahoo ID is: jensrace_inlife
My MSN Messanger email is: hockeys_inlife@hotmail.com
Godbless, and LIVE STRONG!

Wednesday, May 25, 2005 7:05 PM CDT

Today is a sad day for me. I found out that my friend Justin who I talked to on msn messanger, passed away today from cancer. Please keep his family in your thoughts and prayers. He was such an awesome kid, and he fought a brave battle. I know that he is not in any pain and he is with Jesus, looking down on who loved him, cared about him, and knew him.
His website is: www.caringbridge.org/mi/ireland

I have been in severe pain. I have been sleeping lots too. My pain meds make me a zombie, and makes me want to sleep lots. My head pain has gotten so severe, that it's hard to handle it. My knee has been bothering me lots too.

For the long weekend my mom and I went to Trail BC. We went to visit with my grandma and my cousin, her husband and little daughter Kiara. I also got to see a friend of mine from Nelson. Kiara, will be two in August, and she is such a cutie. She has curly hair and is always smiling. I had a very good visit.
On our way back home on Tueseday, I was very sick. I slept all the way home and I was feeling sick.

I hope you all have a good week. Please sign my guestbook, and thanks for stopping by.

My yahoo messanger ID is: jensrace_inlife
My MSN Messanger is: hockeys_life@hotmail.com
My email address is: hockeykid@telus.net

Tuesday, May 17, 2005 5:11 PM CDT

Well I haven't updated in a week so I thought today would be a good time to do so. My headaches have been really bad. It has been really frustrating for me. My knee has been acting up as well. The pain is really starting to get me down, even though I try really hard not to let it, because I know I am strong, but it is hard when it just keeps hurting and it doesen't seem to get better. On Sunday, I ate my very first corn on the cob, which I haven't ate for five years. I must say it was very very good!!!!!!!!

Despite the pain, I had a good weekend. On Saturday, I went bowling with my life skills worker, and my friend Ashton. I got the higest score. Then after that, I went to a fundraising dinner for the Community Living Center.

On Sunday, I went to my friend Taryn's dry grad fashion show. It was very good and I had lots of fun and I enjoyed myself.

On Monday, I had a tough day. My head was really bothering me. I had what I call the crab grab, and that means, nerves pinching in my head. There was only three kids a pre-school so it was a very quiet day.

Today, I went and volenteered at pre-school. There was thirteen kids there today. Tonight, my boccai club is having their year end dinner.

Well That's all for now. If you want to email me you can at: hockeykid@telus.net My Yahoo Messanger ID is: jensrace_inlife My msn messanger ID is: hockeys_life@hotmail.com
Live Strong,
Jenna

Thursday, May 5, 2005 6:04 PM CDT

Hi Everyone,
Today I went to my Rheumatologist and I was diagnosed with Osteoporosis. Just one more thing to add to the list and more medication to take. Right now it's frustrating for me, but I know that I can beat it. This is my eighth diagnosis, but I just have to put it past me and beat this. I need a bit of encouragement, and I know that I can beat this and fight all of my illnesses.

I had my cavity filled on Monday, and my jaw is abit sore, because I had my mouth opened for a period of time. I am experienceing pain in my knee which could very well be a muscle thing. I have been still having my headaches that are bad, but it is helping by taking Oxycodene.

Well That's all for now. If anyone wants to email me, my email is: hockeykid@telus.net
If anyone wants to add me to their yahoo messanger or Msn messanger here are my ID's: Yahoo: jensrace_in life
MSN Messanger: hockeys_life@hotmail.com
Live Strong, and Godbless.

Wednesday, April 27, 2005 4:58 PM CDT

This week so far, has been an ok week. My pain has been very bad, and I am on Oxycodene, which makes me feel teary eyed, and doesen't make me feel very good. I went to the dentist today and I have my very first cavity. So I have to go back on Monday, and my dentist will fix it. I have been feeling a little bit down lately, and I think it has to do with my meds and the pain. I am trying to still keep a very positive attitude towards all of this.

I had a good weekend. On Saturday, I went to stay with my restspite family. I had lots of fun there as usual. I went to church with them, and we walked to 7 Eleven to get a slush.
Then on Sunday, my neighbours took my parents and I out for super to a Chinese restaraunt.

That's all for now. If anyone wants to email me, my email is: hockeykid@telus.net My MSN Messanger email is: hockeys_life@hotmail.com My Yahoo Messanger ID is: jensrace_inlife.
Godbless,
Jenna

Wednesday, April 20, 2005 1:05 AM CDT

Well This week, has been a better week so far. Pain wise unfortanatly it's not better. I am back to myself as far as having high spirits again. I am doing my exercises more now, so I have more pain. I am still thinking as positive as can, even though times are tough sometimes.

This past weekend was a good weekend as well. On Friday night, I slept over at a friends house. We watched a movie and played on the computer. Then on Sunday, I went to the fair with her, and her dad. Her dad took her and I out for lunch.

My mom, and dad picked me up from my friends place, and we went to my aunt and uncles place. My other aunt and uncle from Salmon Arm were there. I haven't seen them since I was twelve so it was nice to see them. I had a lobster and shrimp dinner and it was yummy!!!!!!!!!

One of my hockey buddies, Adam, called me on Saturday night. I was a little down, so it made me feel alot better. We talked over a little over an half an hour. It was nice to talk to him. Hockey season, is over now, so Adam is back home in Alberta.

On Sunday, I went to my friends house with my dad. We stayed and visited for awhile. Then I went to a KHIBIT Hockey Tournament with my friend Taryn. The players in the tournament were only thirteen and fourteen year olds, and boy were they ever good. A team from Callifornia won the Championship.

On Monday, I went to preschool to volenteer. I was wide awake and never fell asleep. I then went to the Community Living Centre to volenteer with this lady named Libby. I teach her how to use the computer and how to email.

Today, I went to volenteer at the preschool. It was another a good day. Then I came home and I slept for a bit. My hockey buddy Jared called me today. I was so excited, since he has been very busy playing hockey in the AHL, I haven't heard from him since Janruary.

Well that's all for now. I will update again soon. I love emailing new people and making new friends, so if you want to email me, I would love to hear from you. My email is: hockeykid@telus.net
My MSN Messanger email is: hockeys_life@hotmail.com
And my name for yahoo messanger is: jensrace_inlife
Godbless and I hope you have a great rest of the week.

Thursday, April 14, 2005 2:07 AM CDT

Hi Everyone,
Well This week again has been pretty bad pain wise. I am now off the Fentynal patches and I am now in more pain. The Fentynal Patches, make me extremly sick, but they get rid of the pain. So I am not sure what I should do about the situation. It is so tough living in so much pain like this. Right now I am in a whole bunch of pain. I went to Physio the other day and I am working on getting it so my jaw is not so tight. My jaw is still pretty swallen. Today I didn't feel good at all. I am still fighting and keeping strong though.

My email address is: hockeyslife@hotmail.com
My Yahoo Messanger id is: jensrace_inlife
My Msn ID is: hockeys_life@hotmail.com
That's all I have to say tonight. Thanks for all the prayers and comments in the guestbook.
Godbless,
Jenna

Saturday, April 9, 2005 2:47 PM CDT

Well it's been another really really tough week for me. I have been in really really severe pain, in my jaw and head. All of a sudden my jaw decided to swell up like a balloon. My head pain is the worse it has gotten as well. I am back on the Fentynal patches for the pain. They help with the pain, but it makes me really really sick and also it makes me sick to my stomache. I have been having problems with my bladder condition as well.

On Tueseday, my dad and I went to the Blazers award banquet. My buddies Reid and Devan took home the most awards. Devan took three home, and Reid took four home. I got to sit with Devan, two other Blazers, Devans dad, Devan's billet and her two kids, and two other billets as well. My dad sat at another table with friends. I got lots of pictures taken, and I jsut got them developed the other day. I will be putting new pictures in the photo album later today, so be sure you check them out.

Well I am not feeling very well so I will stop this update for now. Please sign the guestbook, as it always helps encourage me, and I love reading new entries. My email address is: hockeykid@telus.net
If you have MSN Messanger and would like to add me to your list you can at: hockeys_life@hotmail.com
My Yahoo Messanger ID is: jensrace_inlife
Godbless, and I hope you all have a great weekend.
Live Strong!

Thursday, March 31, 2005 5:33 PM CST

I have had a rough week with my pain. My head pain has been really bad. I was eating super on Saturday night and just before I started to eat, my jaw started to really hurt and the pain was comming from the implants. It felt like a really bad toothache. I have had a really bad pain this week, but I am still living strong.

We had two play-off Blazer games to go to this week. On Tueseday night we won the game! Reid's mom bought me a Blazer shirt for my birthday. My dad and I went downstairs after the game, and I went and congradulated Reid, and my buddy Devan on their win. I got to meet another hockey player too, and I was excited to meet him. Then on Wed. night we lost in over time. It is a very very good series, and the series is tied 2-2 right now.

Anyone who wants to email me can. I love meeting new people, and making new friends. My email address is: hockeykid@telus.net
If anyone has MSN Messanger or Yahoo Messanger and would like to add me on to your list, you can.
MSN email is: hockeys_life@hotmail.com
My Yahoo Messanger email is: jensrace_inlife@yahoo.ca
Godbless,
Jenna

Thursday, March 24, 2005 6:56 PM CST

I had the best birthday ever! I went out for super with some friends to a restaraunt called Montanas. I got a free meal because it was my birthday. They sang Happy Birthday to me, and I had to wear a moose hat and after they gave me some icecream with whipped cream and candy worms on it. After super we all went to my house, to watch Ladder 49, and to have cake and icecream. The best preasent I got were flowers from my hockey buddy Reid! That made my day, and my dad is still trying to scrape me off the ceilling! I got lots of money for my birthday and I got some bracelets, a dolphin clock, a book, a carebear, a cd, and some Canuck socks.

Today I am feeling weak and I have a lot of preasure comming from my jaw, into my head. I had a busy day today, because I went to the Community Living Centre to volunteer, and I did alot of work. It helps to volunteer even when Im in pain, because it helps to kind of take my mind off the pain.

Happy Easter! I hope you all have a great Easter. Thankyou for stopping by and checking on me. My msn messanger email is: hockeys_life@hotmail.com My email is: hockeykid@telus.net
I also have yahoo messanger and that email is: jensrace_in life@yahoo.ca
So if anyone has msn messanger or yahoo messanger, feel free to add me on to your list.

Saturday, March 19, 2005 8:48 PM CST

Hello Friends,
Well This week has been an ok week. My pain is still not good, and I am still getting these horrible headaches. I went to the doctor on Friday about my ears. A month ago, I got water in my left ear, and it is plugged, and it didn't come out. The doctor said there is nothing that he can do, because it is very plugged, and it could be the result of all the surgeries I have had. So now I have a hearing loss in my left ear now. I will be going to the ear nose and throat specailist to see if there is anything they can do to help.

I am in restspite right now and I am having a good time. We watched the Rocky and Bull Winkle movie, and then I went to the park with Mac. They just moved into a new house and it's great.

I am getting excited for my birthday on Wed.! I can't wait! It will be my first birhtday in awhile that I get to celebrate it with three of my friends. In the last few years it's just been me and my mom and dad. I get to go out for super with three of my new friends, and I met all of them at a hockey game.

The Blazers won against PG lastnight five to one! So we are in the Play-offs! Yahoo, and PG is done for the season now. They play again tonight against PG and they are going to win! I got to talk to my hockey buddy Ajay the other day, and he's doing great. I also got to talk to my other hockey buddy, Luky and he's doing great also.

That's all for tonight. If anyone wants to email me, you can at: hockeykid@telus.net
If you have MSN Messanger and you want to add me to your list you can at: hockeys_life@hotmail.com
Live Strong!

Sunday, March 13, 2005 5:47 PM CST

Hello Everyone!
It's been awhile since I updated. I have had a very busy week. Health wise is still the same, I am still in alot of pain, and having majour headaches. I may get a referl to see an nerologist to see if there is anything he can do to help my headaches. I saw my Rhematolgist and I got my test results. I don't have Lupis and I don't have Rhematoid Arthritis. I had a bone denstity test done in 2003, and I was border lined of having Osteperosis. Because I am so young, my doctor is concerned, and she wants me to have the test done again, to see if I have it for sure. If I do have it, then she will put me on medication for it.

On Tueseday night at a Blazers game, they were honouring some of the Blazer Legends, who are players that now play in the NHL, and they used to play for the Blazers. I got to see some of the players I met before who are Shane Doan, Tyson Nash, and Jarome Iginla. I got a picture taken with Jarome Iginla and Tyson Nash. We also won the game that night as well.

Then on Friday night, we had another Blazers game to go to. It was the last home game of the season. My buddy Reid, who plays for the Blazers, his mom, and dad were at the game. I went down to visit them. Reid's mom, gave me a Lance Armstrong, Live Strong Bracelet. She said the bracelet reminded her of me, so she bought me one. A few months ago at a hockey game, I won some cd's and my name was put in a draw to win a gift certifacate at a store called Play, were they sell cd's and dvd's. Well on Friday night, the anouncer announced that I won three hundred dollars gift certifacate.

On Saturday, I went out with my life skills worker. We went to the store play were I won the gift certifacte for. I picked out two cd's and three dvd's, and I have $175.69 left. Then we went for a walk around Riverside Park, and then we went to Cowboy Coffee. Then I went and slept over at my friend Sherry's house.

It is my birthday on the 23 of March. I am looking forward to it, as I always do. I am not sure what I am going to do yet, I will probably just go out for super with my friend, and my mom and dad.

Well that's all for now. If anyone wants to email me, you can at: hockeykid@telus.net
Or if you have msn messanger, and if you would like to add me to your msn list, you can at: hockeys_life@hotmail.com
Live, Love, and Laugh Often.

Tuesday, March 1, 2005 2:57 PM CST

Today, I am not feeling that great. My headaches are driving me crazy. They have been good for a couple of days then all of a sudden yesterday they started up again. I have been having a burning senation in my head, and also something else I call a crab grab, meaning the nerves pinch, and it is very very painfull. I am eating soft foods right now to see if that will help some of the headache pain.

This weekend at a Blazers game I got to meet my buddy Reids, grandparents, and brother. They are all wonderfull people. Reids mom gave me some carmel popcorn she made, a picture of Reid, and his hockey card. I also got to meet another new hockey buddy named Adam, and he plays for the Blazers as well. I made Adam a hockeystick and puck keychain. He must have really liked it, because he thanked me three times, and he gave me two hugs!

Well that's all for now. If anyone wants to, you can email me at hockeykid@telus.net Or if you have MSN Messanger and want to add me to your list, please feel free to, at: hockeys_life@hotmail.com
Godbless,
Jenna

Tuesday, February 22, 2005 2:44 PM CST

Hi
I haven't updated in awhile, because I have been so sick. This weekend was a very bad weekend for me. I am still pretty sick, but I wanted to update to let everyone know how I am doing. I have been having a difficult time with my headaches. They are now at a point, where it's so bad, it's hard to handle them. So I took Oxycodene, and it is taking away the headache, but it is making me so sick. I am like a Zombie. I don't want to do anything but watch tv, and sleep. Except for the exception of going to hockey games. I go even when I am really sick, I don't like missing games. On Saturday, I was very sick, but I still went to the game, even though my dad thought I should stay home. I am white as a ghost, and I don't have much appetite.

Today, I went and volenteered at the Pre-school. I got asked yesterday to do Mondays and Tuesedays. In the Tueseday class, there are thirteen kids. IT kept me busy, in Monday's class there are only 6 kids. On Mondays, I go to Community Living, and I help out with

There is a hockey game tonight, so I will be going to it. The Blazers are now in fourth place, which is the final play-off spot. I sure do miss the NHL! If I didn't have WHL Hockey to go and watch, I would be lost without it!

Well That's all for now. Anyone who would like to email me, can at: hockeykid@telus.net
Anyone who has msn messanger and would like to add me to your list, please feel free to at: hockeys_life@hotmail.com

Thursday, February 10, 2005 0:57 AM CST

Hello Friends,
Today, I went and saw an Rheumatologist doctor. Her name is Doctor Hudson, she is a very nice, and good doctor. I now have two more things to add to my list. I have Osteo-Arthritis, and Fibromyalgia. I got a blood test done today, and they took eleven different types of blood test. They are testing me for Rheumatoid Arthritis, and Osteoperosis. Tommorrow I have to get a bunch of X-rays done. Then in four weeks, I have to go back to her, and then we will find out all the test results. I also have Arthritis in my jaw as well.

Today, after the doctors, my mom and I went to get my blood tests. Then my mom and I went to Macdonalds for lunch. After, that I went and did my volenteer job at the Community Living Centre. After I was finished that, my friend Sherry, and I, went to the Library. Then I took the bus home with Sherry, and I went to her house for about a half an hour.

Well that's all I have to say for now. If anyone wants to email me, you can at: hockeykid@telus.net
If anyone has MSN Messanger and wants to add me to your list, you can at: hockeys_life@hotmail.com
Godbless You,
Jenna

Monday, February 6, 2005 0:30 AM CST

It's been awhile since I have updated. I haven't been on the computer for three days. I am still battling these awful headaches, and they are making me feel very sick. All I have been doing today is laying down on my bed, most of the day, and watching tv. Lately I have been feeling really really awful from them. It even hurts my head when I chew. My tummy has been upset as well. I am starting to feel and look like I did, when my jaw was so bad. Just when I start to feel well again, something happens, and things seem to go down hill again, but just cause my health is, it doesen't mean my spirit and my attitude is, cause it isn't. I am a Fighter, and I am going to Fight through anything!!!!

My friend Devan Dubnyk, is the goalie for the Kamloops Blazers. He told me that he is amazed how positive I am. He said that I am an inspiration to everyone, and that I can fight through anything, cause Im a fighter, and I know that he's right when he said that. Of course all my friends, and family help me keep going as well. Devan is drafted to the Edmonton Oilers. Devan, told me that he is going to try his best to get me an Oilers Jersey, with the name Dubnyk on the back of it.

On Saturday night, we had a Blazers game. We played our rivals the Kellowna Rockets, and we tyed the game. Both of my hero's and friends, Reid and Devan, got the stars of the night, so that made me happy. Reid's mom and dad were at the game, so I got to visit with them for abit. Reid's mom gave me a whole package of chocolate kisses. I made a hockeystick, and puck key chain for another player for the Blazers, and his name is Kalvin Sagert. I gave the keychain to Kalvin's mom. Kalvin's mom made me to bracelets and they are orange and blue beads, the Blazers colours.

Well that's all for now. I am going to see an arthritis doctor on Thursday, so I will update then and let everyone know how it went. For those of you, who want to send me an email, feel free at, hockeykid@telus.net Those of you who have msn messanger and want to add me, you can at: hockeys_life@hotmail.com
GodBless,
Jenna

Monday, February 31, 2005 1:08 AM CST

Well It's about time I do an update. I haven't been feeling well the last few days. I have been dealing with nausea, and feeling weak lately. Now everytime I chew, my head really hurts. It's starting to feel like it is back to the old stuff like it was with my jaw, not being able to chew. It is very frustrating for me, but I now I am strong and I will get through this, even if it means, stop chewing again for awhile. It's tough because I haven't been able to chew for five years, then suddenly I can chew again, and now I may have to stop for awhile, because it hurts too much. I wish my headaches would go away, or I wish there was something that would help them. I will be sending an email in the next day or so, to my doctor in NC, to let him know what's going on, and to give him an update on how I am doing.

On Saturday, I went out with my life skills worker. We went to Superstore and picked up some stuff we needed to make soup with. Then we went to her house and made soup. We played a couple of games of Pass The Pigs, and UNO. After that we got to have some soup and it was good. I love home made soup. She dropped me off at my friends Jen and Curt's place. I haven't spent time with them for awhile so it was nice to get out and visit with them. I even stayed for super and we had Spagetti.

Well that's all for now. Thankyou for stopping bye. Please sign the guestbook, so I know who stopped bye. If you want to email me, you can at: hockeykid@telus.net
Those of you who have msn messanger, please feel free to add me to your list if you want. I love meeting new friends. My msn messanger email is: hockeys_life@hotmail.com
GodBless all of you.

Wednesday, January 26, 2005 0:00 AM CST

This week has been a good week so far. On Monday, I had pre-school. I had a tuna sandwich for snack and this little boy didn't like the smell. He told me to get out, it was cute the way he said it. The next thing I know he comes up to me, and he says Im sorry, Im sorry, and he gives me a big hug. I thought it was so cute, considering he is only three and the youngest in the class.

Today was an ok day. On Sunday I ate steak and eggs for breakfast. It was my first time eating steak since my operation. I am paying for it now though, but it tasted so good! My jaw is now inflammed, and I am in lots and lots of pain. I went to Boccai tonight, and despite the pain I had a good time, and I had lots of fun.

Tommorrow, I am going to the dentist. At night there is a Blazers game, so my dad and I of course are going to it. I get to meet my buddy down stairs after the game. I made him a hockeystick and puck, glow and the dark keychain.

Well that's all for now. If you want to email me, you can at, hockeykid@telus.net
If you have msn messanger, feel free to add me to your msn list, my msn email is: hockeys_life@hotmail.com
GodBless, and I hope you all have a good rest of the week.
Jenna

Friday, January 21, 2005 5:02 PM CST

It's been a tough week, dealing with the pain. Other than that the rest of my week has been good. I have had more pain though, then I normally have. My jaw hasn't bothered me for about a month, and it suddenly started to bother me this week. It is hard to chew, because of the pain. It is frustrating sometimes, because I wish I knew what was going on in there. I have been getting these really sharp jabbing pains in my head. They are worse then the normal headache that I usually get.

I have been feeling down abit this week. I think parshley it is because I am still feeling sad about Luky being traded. Another part of it is the pain, I feel sad sometimes when the pain is abit too much to handle. I am still trying to smile lots though, and stay as positive as I can, even during the tough times.

I would like to thank all the people from Bears Who Care, and everyone else who sends me happy mail, and home made cards in the mail. I love getting the mail, and it helps brighten my days and help me smile more. So Thankyou all very very very much!

On Monday, I volenteered at the Pre-school. I was in alot of pain, and I was almost falling asleep. I am glad that the teachers there understand my situation, and care alot about me, and understand that if I have to go, that it's ok with them. On Tueseday night I had Boccai Ball, and that went good. I did really well, and got my team some points. Then on Wed. I had speaking group, and that went good. Thursday, I volenteered at the Community Living Center, then I went to the Library afterwards. Tonight, we have a hockey game, and I can't wait! They haven't played at home for over two weeks. So I am looking forward on seeing my buddy Reid play.

Well that's all for now. Those of you who want to email me, feel free to, I love recieving emails. Also those who have msn messanger, and want to add me to their list, feel free to. My email is: hockeykid@telus.net
My MSN Messanger email is: hockeys_life@hotmail.com
Godbless, and please sign my guestbook, especially if you haven't been here before.

Thursday, January 13, 2005 1:42 AM CST

This week was a very tough week for me. I will start off with health wise first. I have been having problems with my headaches, they just keep getting worse. We went to the doctor the other day, and my dad asked him if there was anything that he could give me for the headaches. My doctor said no, because I am on some heavy drugs already, and if anything would work, the meds I am on would help, but unfortanatly they don't. My dad asked him if they will ever go away, and he said he didn't know, because they are caused by musscle from my jaw. On the tenth of Feb. I am going to see an arthritis doctor about my knees. I haven't been sleeping that well, because of the pain that I am in.

On Monday, my bestfriend, Luky got traded. He got traded to the Medacine Hat Tigers, in the WHL. The Tiggers are in second place in their divison, so I am glad that he went to a good team. He asked to be traded, to better his hockey career. I was really upset when I heard this and I still am a bit. He emailed me the other day, and told me that this doesen't change anything, and that we will still keep in touch through email, and phone. He will be back in a couple of months after the hockey season is over, so I will maybe get to see him.

Well it is late, and I have to go to bed. If anyone wants to email me feel free to at, hockeykid@telus.net
If anyone has MSN messanger, and wants to talk to me, feel free to add me to your list, at hockeys_life@hotmail.com
Jenna

Thursday, January 6, 2005 11:44 PM CST

It's been awhile since I have updated my website. I badly sprained my arm when I fell recently, and it hurt to much to type and use my mouse. I had a tenture bandage wrapped around it, so it was also hard to bend it. It is getting better, but still hurts a little bit. My jaw has been hurting latley, but not too much. My headaches, are what is getting worse, and hard to handle. My headaches are getting as bad as my jaws were. I have had a really really bad headache today.

On Saturday, NewYears Day, my dad and I went to a Blazers game. My buddy Reid's mom was there to watch him play. I got to sit with her for two periods, instead of sitting in my regular seats. We played against our rival team, the Kellowna Rockets. There were 66 shots on our goal, and we won the game 4 to 2. After the game, I got to go downstairs and say hi to Reid. Reid's mom introduced me to three other players. Our goaltender, Devan Dubnyk, came up to my dad and I, and started talking to us. Devan told me that he would like to be my friend too, so that made me happy and helped me smile more.
After the game, my dad and I went home. Our friends Tracey, and Tony came over to have super with us, and we had Pizza.

If anyone would like to email me please feel free at, hockeykid@telus.net. If anyone has msn messanger and would like to add me to their list, my msn messanger email is, hockeys_life@hotmail.com
Godbless,
Jenna

Tueseday, December 28, 2004 0:19 AM CST

Tonight, I took my dog out for a walk, and I fell on the ice. I very badly hurt my arm and it is difficult to type, but I am managing. It hurts really really bad and it is hard to move it, but luckily I didn't break it. Im sure it will just be badly bruised. I also badly scraped two of my fingers too. So tonight I am in lots of pain.

My Christmas was really good. Christmas Eve, my dad and I went and delivered preasents to my Auntie and Uncle. Then at night, my mom, dad, and I, went out to Rick's Grill for dinner. Then we went out and drove around to look at Christmas lights. When we got home, I got to open three preasents.

On Christmas Day, I woke up at ten o clock, and we opened preasents at 11:00am. I got lots of neat things this year. I got a Kamloops Blazers jersey, some Vancouver Canuck things, a Toronto Maple Leafs pillow with arms, clothes, two cd's, two dvd's and more stuff. My mom made a turkey dinner and it was just my mom, dad and I. My mom made a specail desert too. It was a Pineaple square. I also got lots and lots of money this year too.
I wasn't feeling well Christmas day, but I still enjoyed myself. My mom and I went and took my dog for a walk.

Well that's all for now, because my arm is really sore. If anyone wants to email me, my email is: hockeykid@telus.net
My MSN Messanger email is: hockeys_life@hotmail.com
I hope you all have a good week. Godbless,
Jenna

Thursday, December 23, 2004 0:18 AM CST

Hi Everyone,
It's about time that I update my page. I have been doing ok, it's been a quiet week not to busy. Today, I went over to my Auntie Debbie's house. My cousin Allison and I, played on her game cube. We watched tv, and talked, then my Auntie and Allison drove me home. They stayed and visited with us for an hour, and I had fun chasing my cousin around the house. Even though I wasn't feeling to well, I always have fun with my cousin. She is ten years old and really a great kid. I scraped my arm on the wall though, and boy did it hurt. Then later tonight, my dad, and I took my dog out for a walk. I slipped and fell on the ice, and I badly hurt my hand. I am very lucky I didn't break anything though, you see my bones are very brittal so with a fall like that one, it will hurt for a couple of days.

On Tueseday, I made very good progress in Therapy. For the very first time after my jaw operation, I chewed my first peice of gum, it was a chiclet, and it didn't hurt at all, when I chewed it. After Physio, we went shopping for my Grandma Fowler and got her a gift certifacate at Extra Foods. Then we went over to her place and visited her and picked up my Christmas preasent. We had a nice visit, it is always great to see her. My Grandma's neighbour came over to borrow some Vanilla from her, so I helped her carry it back to her appartment. She offered me in for a couple mintues to see a couple of her Christmas decorations.

I can't believe that tommorrow is Christmas Eve! I am getting so excited! I have been shaking my Christmas Preasents and trying to guesse what is in them. I get to open one christmas preasent on Christmas Eve. I still don't know which one to open yet, they all look so good and neat. Well I hope you all have a very Christmas! MERRY CHRISTMAS EVERYBODY!
Anyone who wants to email me, feel free to, I love to receive emails. My email is: hockeykid@telus.net
Anyone who has MSN Messanger and wants to add me on to your list feel free to at: hockeys_life@hotmail.com

Wednesday, December 15, 2004 5:20 PM CST

Hi Friends,
Today has been a good day, except for the pain. My dad woke me up at 11:30 this morning and told me, to get dressed, because he had a surprise for me. Two NHL players were at the Seven Eleven signing stuff. My dad and I went there, and I got to meet Brad May, and Mike Keene, who both play for the Vancouver Canucks. I also got my picture taken with both of them too. I was also able to talk to both of them as well. They both are really nice players. Brad May doese alot for kids like me who have an serious illness and disability of any kind. Brad May put on this Charity event hockey game, that my dad and I went to tonight. For those that don't know, the Canucks are my favourite team.

I was so excited tonight, because I got to meet my all time favourite hockey players and hero's. I got to meet Darcy Tucker, who plays for the Leafs, and he signed my Leafs jersey. I finally got to meet my hero's Tyson Nash of the Cyoties, and Jarome Iginla of the Flames! Jarome signed my Flames Jersey. Iggy is one awesome guy. Another player who is awesome is Tyson Nash!!!!! Tyson talked to me for a few minutes, gave me high five and even said bye Jenna when we left. I also got to talk to and see my fav. all time player, hero and buddy Shane Doan!!! He saw my website and he told me I did a great job on it. He even went out of his way to give me a hug!!!!!! Even though I have a splitting headache, I had fun!

On Tueseday, my life skills worker came over and we made a GingerBread House together, and it was lots of fun, even though I wasn't feeling well. Then I had physio in the afternoon. Then for super I went to the ABC Restaraunt for my boccai Christmas Party and I had fun at that.

On Monday, it was a really bad day. I had a really really bad head ache and I started falling asleep at Pre-school. So I went home early. I felt kind of embarresed because I didn't want them to think I didn't want to be there, but they understood that I wasn't feeling well.

Well that's all for now and I will update in a few days. I love making new friends, so if anyone wants to email me, you can do so at: hockeykid@telus.net
If you have MSN Messanger you can add me to your list at: hockeys_life@hotmail.com
I hope you all have a good rest of the week, and thankyou for comming and checking on me.
Godbless you all,
Jenna

Friday, December 10, 2004 5:01 PM CST

Hi Friends,
Well it's about time that I do my updates. I have had another tough week, but I am trying my best to keep positive, and to keep my fighting spirit like alaways. My jaw has been locking twice so far on me, this week. The first time since my jaw surgery in May, that it has done this. It becomes really stiff and hard to open, it is like a mussel spasm. We may be getting it x-rayed soon, so we know whether there is damage or not. We are fearing that there may be damage done from when they did my teeth operation. Or it may just be the mussel causing it. Yesterday, I had severe tummy aches that started early in the afternoon and continued at night. I am still suffering from majour headaches. Now there are severe sharp and jabbing pains in the back of my head that are starting to cause me more pain. The pain has been so severe lately that I have been having tears in my eyse alot this week.

On December 15th we are having a Charity NHL Hockey game come here. My dad and I already have tickets to the game, and I am very excited, and I can't wait. Some of my all time favourite hockey players and hero's will be here. My Hero's Doaner (Shane Doan)from the Pheonix Cyotes, Iggy (Jarome Iginla) from the Calgary Flames, Mike Madano from the Dallas Stars, Brad May from the Canucks, Matt Cooke from the Canucks, Mattias Ohlund from the Canucks, Brent Sopel from the Canucks, Daryl Sydore from the Lightening and a bunch of other players are some of the players that will be here.

Tonight we have a game against the Vancouver Giants. I am excited for the game cause I get to see two players play, that used to play for the Blazers, and now play for the Giants. I met one of them, Conlan Sedar, and he is a really nice person, and I was sad to see him go from the Blazers, which I think that was a mistake, but another team wanted him, so our coach didn't have a choice in the matter. He then went to the Moose Jaw Warriors, and then they traded him to the Giants. I also get to see my buddy Reid play, he plays for the Blazers, and I get to see my buddy Luky, because he is injured right now, and is alaways at the games, so I get to talk to him, and say hi to him. Hockey really helps me, especaily on days like today when I am in so much pain. I miss the NHL alot, but I must say that I am replacing it with WHL Hockey right now, (that's the leauge the Blazers are in,) But I can't wait untill there is NHL hockey again!
Well that's all for now. Anyone who wants to email me can at: hockeykid@telus.net I love meeting and making new friends, and penpals. Those of you, who have MSN Messanger and would like to talk to me, feel free to add me to your list at: hockeys_life@hotmail.com
Please keep my friend Jeremy in your thoughts and prayers, his site is: www.caringbridge.org/co/jeremy
Godbless all of you and Thankyou for stopping by and checking on me. I love reading all the comments and all of the encouragements.
Jenna

Thursday, December 2, 2004 11:32 PM CST

Hi Friends,
I haven't update for a bit because I haven't been feeling very well at all. So I thought it was about time for another update, and to let you all know how I am doing. My head pain has gotten alot worse and now it even hurts to put preasure on it, meaning it hurts to lay down. I have been also getting really bad pain spasms. I have been chewing alot more and using my jaw alot more so that's one of the reasons why it may be getting so painful. The physio therapist told me I have to start using my jaw muscles more so that's why I am chewing more. It's getting frustrating abit, because my head pain is getting worse instead of better. My tummy has been really really bugging me lately, and I was sick to my tummy tonight. I called my hockey buddy Luky lastnight, cause he always helps and gives me encouragement when I need it. He told me that I am a tough Cookie, and that he will see me on Sunday at the game, and that I better be smiling! That made me smile and laugh when he said that.

On Tueseday, I went and spoke at St.Ann's which is a Catholic School. I spoke to the high school part, the grade tens. One student from one of the classes sent me a really nice email telling me how much my talk meant to him and that I reminded him of Mother Theresa, always wanting to help people. I thought that was awesome, and he also said he wanted to keep in touch with me. I like meeting new friends, especially ones who I meet through my talks at St. Ann's. I got to sit in on a grade four class while I was waiting for the other class I was supposed to talk to, to start. The grade four teacher, Mrs. Gracie knew me from last year, so she was happy to see me this year. She explained to her class all about me, and my illness. The students asked alot of really good questions. Mrs. Gracie's class last year, donated fourty dollars for my expenses for my operation in NC. last May. They prayed for me all year last year. This years class, all prayed for me, when I was there, and it makes me feel really good, to know that alot of people who don't even know me, care about me, and pray for me.

Tonight I watched a hockey game on tv. It was a game made of all the best WHL Canadian hockey players, and they played against a Russian team. A hockey player, from the Blazers played on the Russian team, his name is Roman Tesliuk. The WHL team won lastnight and tonight. Lastnight they won 6-0, and tonight they won 5-2! The WHL leauge, is the leauge just before the NHL. All the players that play in the WHL are all between the ages of 16, to 20 years old.

Well it is getting late so this all that I will update tonight. I will update in a couple of days, if I am feeling up to it. I love to recieve emails so those of you who want to email me, can at: hockeykid@telus.net, if you email me, you will get a reply back. Also for those who have MSN Messanger and want to add me, please feel free to. My MSN email is: hockeys_life@hotmail.com
Godbless you all, and I hope you all have a great weekend. Thankyou for comming and checking on me, and thankyou for keeping me in all of your thoughts and prayers, they help.
Jenna

Friday, November 26, 2004 6:12 PM CST

Hi Everyone,
It's been a pretty rough and tough week, as far as pain and feeling rotten goese. This morning I woke up with a really really bad headache, which I still have. My tummy is upset, and it hurts real bad. I went to the doctor today, and he is going to refere me to an arthritis doctor for my knee to see if I have arthritis in it, and to see what might be causing the knee pain in the knee joints. My jaws, are starting to bug me more now, because I have started going to physio for my jaw, and doing exercises. So doing the exercises make my jaw painful, but I don't have a choice, if I want my jaw to get better.

I am going to a hockey game tonight. My buddy Luky is injured, cause he broke his hand and had surgery on it on Wed, so he is out for at least six weeks. My new buddy Reid is injured too, but he is getting ready to go back on the ice soon. So tonight, I hope that I get to see Luky, and Reid, cause that will help me smile, seeing my two buddies, and two of my hero's.

On Wed. I wasn't feeling so well so I just stayed home. I had a really really bad headache and I couldn't concentrate, it was even hard to concentrate watching tv. I got to watch tv, and cuddle with my mom. The most favourite thing I love doing with my mom and dad, is cuddling and watching tv with them. I also had a really really bad tummy ache.

On Thursday, I had a really busy day. My life skills worker, Gila, came and picked me up. We went and did some shopping, and I got some Christmas Cards. Then we went to Tim Hortin's and I got some soup for lunch. Then we went to the pet store. I got to pet a Chinchilla, and I got to hold a baby kitten. After that was done she dropped me off at Community Living.

At Community Living, I did some work on making changes to the website. The only thing is that we discovered that I have to save my information every fifteen minutes, or I loose my work. That happened to me, so I had to start all over again. It was fun though and I catched on to it right away. That's one thing I am good at and really feel good doing it, is working on websites. I feel proud of myself that I can make websites, and change info on it, despite my disabilities, and I do it on my own without any help.

Then after I was done at Community Living, my mom picked me up. We went to my physio Therapy appointment. My Physio Therapist is Penny and she is really nice. My dad and I have season tickets right be side her and her husband, at the hockey games. She is really good, and I like working with her. I have lots of exersises to do, and it hurts, but I have to do it.

Then at night, my dad and I took my dog for a walk. When I was on the computer last night, Reid msned me on msn messanger. He wanted to know how I was doing, and he told me that he and Luky would see me at the game tongiht.

Well that's all for now. If you would like to email me, you can at: hockeykid@telus.net I love meeting new friends and emailing people. Also if anyone has MSN Messanger and want to add me to their list feel free to at: hockeys_life@hotmail.com Godbless you, and I hope you all have a great weekend.
Jenna

Tuesday, November 23, 2004 11:58 PM CST

This week so far has been a bad week for me as far as pain wise goese. This morning I woke up with pain in my teeth, jaw and head. I also had a lot of knee pain today and I couldn't put preasure on my knee so I used my crutches for the day. I went and play Boccai Ball tonight with my Boccai Club and I had fun, despite the pain. It decided to snow tonight, and it is still snowing!

Monday, was a pretty rough and tired day for me. I went to pre-school and volenteered that was a good time. When I came home though, I was in alot of pain. My head hurt and my stomache hurt, so I ended up in tears when I came home, and I felt pretty rotten. I also found out that one of my hockey buddies, who plays for the Blazers, Luky, he broke his finger pretty bad. He had surgery today to put a plate in his finger, so he will be out for about six weeks.

Saturday, I went and stayed at my restspite family's house for the night. I had super there and watched tv with them. I haven't seen them for so long so it was nice to talk with them and catch up on what we missed.

On Sunday, I went to church with them. I saw my friend and talked with him for a few minutes. I also got to hold a little baby named Madeline, and she is so cute, and adoreable. Then after church, we went back to their house, and I helped them rearrange their living room. Then I played Wrestling with Mack on PS2.

Well that's all for now, thankyou for stopping by and checking on me. If you would like to email me feel free to at: hockeykid@telus.net.
For those who have MSN Messanger and would like to add me to your list, please feel free to at: hockeys_life@hotmail.com
I hope you all have a good rest of the week, and godbless you. Jenna

Friday, November 19, 2004 3:38 PM CST

Hello Everyone,
It's been a few days since I last updated. I have had a pretty busy week, and because it's been busy, I have been pretty tired and sore lately. On Monday I went and volenteered at pre-school. I shadowed a little boy named Oliver. He is three and needs lots of help with crafts and stuff, and he seems to really like me, so I helped him out. When I got home I recieved a package from a lady named Ginger. It was a very nice hockey quilt, which fits nicely on my bed. She also made me a scarf and a bracelet that says I am Tough. I had a really really bad headache all day, and a bad stomache ache as well.

Then on Tueseday, I recieved some mail from this lady named Stephanie, and two young girls that she knows from her church. They each made me a card, and Stephanie wrote a nice letter to me. Thankyou very much for the nice cards, and thankyou Stephanie for the card you made me, and the letter, it made me smile, and it made my day! On Tueseday afternoon, I got to talk to my hockey buddy Jared on MSN Messanger. I haven't heard from him since August, because he is busy playing hockey in Portland Maine, for the Portland Pirates, the Washington Capitals farm team. So it was really nice to talk to him, and he encouraged me to keep strong like I have been doing. He reminded me to keep strong like I have been doing. Then on Tueseday night I went and played Boccai Ball. I had to sit out the third game, because my head really really hurt and it is hard to concentrate when I get these terrible headaches, which have been happening everyday.

On Wedensday, I had to go to the dentist. He put floride paint on my teeth, because I had some sensative teeth that hurt. I don't like the floride paint cause it tastes awful, but at least it helps. I am starting to open my mouth more now. Two weeks ago I could only open up to 17 and now I am at 20. I will be starting physio therapy soon for my jaw. After the dentist we went to Macdonalds and I got to have a fish fillet, for a treat.

On Thursday, My life skills worker, came over and we sorted out some gifts that I am going to be sending to all the bears who cares cubs. Then, we went to the dollar store and I bought some things. Then we went to Tim Hortons for lunch, and I had a bowl of soup. Then she droped me off at the Community Living Centre. I am going to be volenteering my time there every Thursday and update changes on to their website. I am looking forward to it, as it will be good to get out, and all the people there are nice. I met two of the workers there, Heather, and Kelly. Heather signed my guestbook on my other page, and Kelly signed my guestbook on this page. They both enjoyed reading my websites. My dad told me that I have my very own fan club, and I smiled when he said that, hee hee.
Then after I was done at the Community Living Centre, my mom came and picked me up. We went to Kelly O Bryans for an early super, and then we took the bus home.

Today, I have a lot of pain so I am not doing much. I recieved a package from friends in the states, so that put a smile on my face. I got a Pooh Sweater with my name on it, Lizzie Maguire pants, and a Finding Nemo bag with my name on it. I have just been on the computer today, and I did the laundry for my mom. Even though I am in pain, I am still trying to smile as much as I can, and keeping positive, and in high spirits. Tonight there is a hockey game, so I will be listening to it on the radio, as they are playing away in Kellowna. As for my health, I have been getting awful stomache pains lately and feeling sick everytime I eat something. My headaches have been very bad as well, but I am still smiling, and everyday that I am here, is a great day!
Here is my email address if anyone wants to email me, I love recieving email. hockeykid@telus.net
If anyone has MSN Messanger and wants to add me to their list, feel free to add me. My msn address is: hockeykid@telus.net
Godbless,
Jenna

Sunday, November 14, 2004 3:37 PM CST

Hello Everyone,
It has been a few days since I have updated my site, so I thought I would update on how I have been doing.
Lately my head pains have gotten worse, and I have been feeling pretty awful. I have been feeling sick to my stomache a lot more then regular. I also have been having alot of sharp stomache pains as well. My jaws have been starting to settle down alot more, and I think it is because I am using the oils on them, I just wish it would continue to help my head but it doesen't seem to be in the last few days. My knees having been bothering me a whole lot and they are starting to hurt when I walk on them.

On Tuesday, my dad and I went and had a visit with a few of our close friends. They are all adults a lot older then me, but it was fun and we had a nice visit. I got to see my Aunty, Uncle, and my step cousin Mike, and two of my step second cousins who are nine and eight, Taya, and Nadia. Taya and Nadia now live with my aunt and uncle which are their grampa and grampa, so I get to see them alot now, and spend time with them wich is nice.
Then on Tuesday night, I had Boccai club. Boccai Ball is a sport that I play with a group of five other people who all have some kind of disability, and I am the youngest in the group, because all the others are adults. I enjoy it though, and we will eventually get to go to tournaments and play other clubs.

On Wed. I got a phone call from somebody from Community Living that I knew. She just phoned to say hi and to see how I was doing. She said that a teacher from St. Annes Acadamey came to visit her and asked her how was doing, and told her that he wanted me back this year to talk to all the high school grades. I was so pleased that he asked me back again to talk about my story and inclusion. I got such a good report from the teachers and studnest last year, so I am more then happy to go back there and talk to the students again this year.

On Thursday, it was Rememberence day, and because it was a holiday, we had a hockey game at 2:00 in the afternoon. My dad decided to go fishing with his friend Ross, so I got to invite my friend Taryn to go with me. The Blazers played against the Red Deer Rebels, and we won four to one. It was an awesome game! I got to see my Aunty Debbie, My Uncle Tom, and my cousin Allison. I also got to see Stella who used to be the Receptionist at my dentist office. Then I saw a hockey Player, Reid Jorgeson who is injured right now. I talked and walked with Reid for a couple of minutes.

Then on Friday, I just stayed home, and went on the computer for a bit. Then on Friday night we had another hockey game to go to. They played against Kootney Ice and they lost, but they played a pretty good game. We lost four to two, but they tryed and actually played hockey. I thought that they were going to let Kootney walk all over them, cause lately that is how they have been playing, but they surprised everyone and actually played good hockey.

Then on Saturday, my mom and I went and took my dog Coco out for a nice long walk. It was cold, but Coco sure enjoyed it. Then after we went to Tim Hortons and bought some doughnuts. Then we went and ordered some douneirs for super, and then we went home. After super, my mom and I watched a couple DVD'S that we rented. We watched My Baby's Daddy, and Sam and Janet.

Today, I slept until tweleve, and I have been on the computer for a while. Tonight we have a hockey game to go to. We are playing our rivals the Kellowna Rockets, and I hope that they play a good hockey game like they did on Thursday and Friday's game. My cat has been liying on my bed all day, and for some reason he loves it. Anyways, I should get going. Please keep me and all of my friends who are fighting battle's in your prayers. Please also sign the guestbook, especially if you haven't signed it before. I love reading all the positive comments and encouragement, as it all helps.
Here is my email address, please feel free to email me, as I love emails, and anyone who emails me, will deffinatly get a reply back. My email address is: hockeykid@telus.net
Also, if anyone has msn messanger, feel free to add me to your list if you want to. My msn email is: hockeys_life@hotmail.com
Thankyou very much for stopping by my page. Godbless you all, and I hope you all have a good week.
Remember to Smile!
Jenna

Monday, November 8, 2004 9:28 PM CST

Hi Everyone,
Tonight I am feeling frustrated a little, and a bit down, and lonely. I am in lots of pain today in my head and my jaw, but mainly my head. My head has been hurting alot lately, and I mean alot and majour sore. I couldn't sleep much lastnight due to my head hurting, and I was up very early as well. My eyes go all funny when it hurts, so my parents can deffinatly tell when I have one. I just try to remember what my hockey buddies say to me, and that helps a bit. Tonight I was in tears and my mom came in my room, cuddled with me, and told me what exactly my hockey buddy Luky would say. Which is: Keep Smiling for me, and I will score for you. He always says that to me when I need a pick me up. I wish I had more friends to go and do stuff with. I have a good friend named Taryn, but I don't get to see her too often cause she is busy with work and school. The only people that seem to understand about my health problems and disabilities are my hockey buddies, my parents, family members, and Taryn.

Today was my first day back to pre-school volenteering. I volenteer at the Y pre-school, but had to stop for awhile due to my jaw operation. I am still not a hunderd percent better, but I want to try to get out of the house for awhile and volenteer. Some of the kids from last year were back. My little buddy, Kio, and my little hockey friend Paige. Paige goese to hockey games alot with her mom and dad. Her mom says that the only two people she looks for at the games are Digger the Mascott, and Me! I thought that was so cute! It was nice to get back to volenteering there, the kids are so cute, and took to me right away. My first day was pretty fun. After the kids left, I stayed untill 12:30 and helped with the clean up and stuff.

Last Thursday, I went and got a flu shot. It hurt alot afterwards, but I was used to most of the pain. It just really hurt to sleep on it and stuff. Then we went to the Super store afterwards and got some groceries.

Friday, was a hockey game night we won 2-0 and my buddy Luky got two assists. I also got to talk to another one of my favourite hockey players I met through Luky, back in September. Reid Jorgeson #34, he is hurt right now and is out for another month. Reid remembered me, and I got him to sign my Blazers hat, and jersey. Reid is another awesome guy and player, and so I am a big fan of his too! I also got to meet another cool player who is #27, and his name is Ryan Bender.

On Saturday, I worked with my life skills worker. We went to Save On Foods to get groceries that she needed for her house. Then we went back to her house and made some really good Pancakes. I got to have a little one and it was good. Then we did dishes and then played Crazy eights, which is a card game. Then she took me home and I had super, and then my dad and I were off to a hockey game. I saw this little boy I babysit skate during the intermission, and I saw my friend Dianna, who I haven't seen in a long time. We lost two nothing against the Prince George Cougars.

On Sunday, My mom and I went to the mall. We ate lunch at the food court there. I cheated and had some fries. It is called the works, with cheese, chilli, sour cream, onions and bacon bites. Then I went shopping, and bought a shirt and two books. Then I came home and watched tv with my mom.
Well that's all for tonight. Anyone who wants to email me can email me at: hockeykid@telus.net
Anyone who has MSN Messanger and wants to add me to their list can at: hockeys_life@hotmail.com Thankyou all for checking on me, please sign the guestbook, especailly if this is your first time at my site and let me know you have stopped by.
Godbless you all,
Jenna

Wednesday, November 3, 2004 6:28 PM CST

Hello Everyone!
Well this week so far has been a pretty busy week for me. I haven't been doing to well today, and I am a bit under the weather. I am in alot of pain today, and my head is really giving me problems. I have also had alot of stomache pains today too. I went to the dentist today and he just adjusted some of the fillings where it was bothering me. He says that I am not opening my mouth as wide as I did before my dentel surgery. I need to do my therapy again to gain back the use of my jaw and how wide I can open it. So that means alot more pain then I have been experincing.

I found out that my buddy Josh, who got traded from the Kamloops Blazers to Prince Geroge recently, well Prince George just dumped him, didn't trade him or nothing. Josh has respectfully treated me well, and so I feel frustrated and upset on how PG treated him, as I am sure he feels the same way right. I am hopping and praying for the best and that some other club picks him up. This was supposed to be his last year in the WHL, so I am hopping something good turns around out of this. I will always be his friend no matter what because he has treated me so well, just like all my other hockey buddies.

It is my friend Taryn's Birthday today! HAPPY BIRTHDAY TARYN! Taryn has always been here for me, and she is one of my bestfriends as well. I wish her the best birthday ever! Thankyou Taryn for being a true friend. I look up to you and admire you.

Tueseday:
I went to the hospital, and had a swallowing assment done. Things turned out good, except I had an x-ray done and I had to swallow some yucky liquid. In the x-ray, it showed that I use my tounge alot to swallow. So I have to do lots of exercising with that too.
Then after that we came home, and my dad and I went to the Blazers game. We played against Brandon and lost, but it sure was a good efort on their part. They played alot better then they have been, and my buddy Luky got two assists!

Well thats all for now. My email address is: hockeykid@telus.net If anyone wants to email me feel free too, I love emails, and making new friends. Also my msn messanger ID: hockeys_life@hotmail.com If anyone wants to add me to their list, and has msn, then please feel free to.
Godbless,
Jenna

Monday, November 1, 2004 5:12 PM CST

Hello Everyone,
I just wanted to write an update to let you all know how I am doing. A friend of mine grows this type of healing oil and she makes another oil. The oil is called St. Johns Wart Oil. I put it on my jaw where the pain is everyday twice a day. It seems to be helping the pain alot, and my headaches are less painful when I take tyonel threes with codene. My headaches don't go away but they do settle down.

I am having lots of knee pain lately. I may need an operation on it, if it doesen't get any better. It's hard to walk long distances, because of the pain. I am still having some jaw pain, but it is slowly settling down, and I am eating mush food a little. My teeth are really sore still so I am going to the dentist this week to find out whats happening with my tooth.

I am still in great spirits, smiling, and thinking positive and happy thoughts. Please keep all my friends in your thoughts and prayers as always. Especially my friends Jonny and Jonathan. Also please keep Kody bear in your prayers too, as he recovers from his operation. He is such a fighter and a hero. All of my friends I met through the caringbridge network are heros and Fighters!

My email address, hockeykid@hotmail.com
My Msn Messanger ID is: hockeys_life@hotmail.com If anyone wants to add me to their list, please feel free too. Thanks for visiting me and please sign my guestbook.

Thursday, October 28, 2004 11:15 PM CDT

This week I have been in Vancouver BC, Canada. I had to go and visit my doctor. Well the news we got isn't what I wanted to hear. I have to go on mush food again, for awhile, because my jaws are inflammed and swallen. There is too much preasure on my jaw so I have to stop eating alot of chewy foods, for awhile untill pain goese down. I also need a mouth gaurd to wear at night time, because apparently I am grinding my teeth at night. I am still having severe head-aches, tooth-aches, and it is hard for me to sleep at night. I try to keep as positive as I can, even though things are so hard and tough at times.

I got to meet a new friend Katelynn, and she has a caringbridge site as well. She was at Easter Seal House the same time I was there. So it was alot of fun meeting her and her mom, and playing with Katelynn. It is sure a small world some times. That is one of the reasons why I like ESH, because you get to meet all these people.


Thankyou to Connor's Aunt, Rhea Rhea, for sending me a picture of Connor and a letter. It really helped put a smile on my face. As I love getting mail and letters and stuff.

Please keep all my specail friends, and myself in your prayers. Here are my email addresses if anyone wants to email me: hockeykid@telus.net, and if anyone wants to add me on to their messanger it is: hockeys_life@hotmail.com

Thursday, October 21, 2004 7:27 PM CDT

Hello Everyone,

Yesterday, I wasn't feeling well at all. I had a really bad headache, and tooth ache. I called my hockey buddy Luky to say hi and to tell him how I was doing. He told me to meet him after the game, downstairs in the dressing room on Friday night, he will give me some pictures. My dad will be comming with me, and I will get him to sign a couple of things. I can't wait, because it will be a real pick me up for me. After I talked with him, my mom and I went to the credunion to cash my check. Then when we were there, this lady commented on my new Blazers hat. When I told her it was a players hat, she said that's why she never saw it around. Then she asked which player gave it to me, and I said Jarret Lukin, then she replyed, I saw you in the paper! Then We went to the doctor, cause there was another back piece of the earing in my ear again, and it hurt this time when he got it out. This guy who was nice asked me about the hat, and I talked to him, and he wished me good luck with my fight and gave me a thumbs up.

Today, I am still pretty sick. I am in lots and lots of pain in my teeth. My voice is still pretty crackily off and on. I am still getting sick to my stomache. I am still in a hundred percent pain. I went for a walk with my mom and our dog Coco. When we got home, I called Luky's cell, and left a message to remind him about tommorrow night. He never checked his messages, because he got another player Rick Kozak to call here to find out who's called him. So when my dad said it was me calling Luky, Rick put Luky on the phone. So I breifly got to talk to him for a few min.

Please keep me in your thoughts and prayers. Please keep signing my guesetbook. My email address is: hockeykid@telus.net. Feel free to email me if you want, and I will reply back. Also if you have msn messanger and want to add me, feel free to at: hockeys_life@hotmail.com
That's all for now, and Godbless,
Jenna

Monday, October 18, 2004 6:48 PM CDT

Hello Everyone,
I don't have too much to say so this will be a short update, but I just wanted to upadate and let everyone know how I am doing, because it has been three days since my teeth operation. I am still feeling pretty yucky, and crummy. I didn't sleep that well lastnight, because I was in alot of pain. My dentist called me lastnight and I told him how I was doing. He said I should be in pain for at least two or three weeks, Yikes! The pain today has gotten worse, and is so bad! It even hurts to smile, but I am still smiling inside, as my buddy Luky would say. I am dealing with alot more pain then I usually am, so it is very very bad. I am still pretty nauses, and my stomache hurts alot. We have increased my pain killers, so I am taking more then usual, so that's what could be making me feel out of breathe. I am still having problems with talking as well. I had a little nap today about two and a half hours.
Our power went out lastnight about ten o clock,a nd didn't come on untill one in the morning. It was funny, cause my dad, mom and I, were walking around
with flashlights in our hands.

Tueseday Oct. 19:
Today I am still feeling very very crummy and yucky. I am still feeling really nauses and can't keep food in my stomache. My stomache hurts really bad right now, and my legs ache. I am having really severe tooth pain as well. I have managed to eat a little bit, but not too much. I have a red rash on my face, and I don't look so good. My mom went and rented Jersey Girl for me, because she thought it would cheer me up, and it did.

Please keep me in your thoughts and prayers.
If you would like to email me, you can feel free to at: hockeykid@telus.net.
If you have msn messanger and would like to add me to your list, please feel free to at: hockeys_life@hotmail.com
Godbless,
Jenna

Saturday, October 16, 2004 11:51 PM CDT

Hello Everyone,
I am still pretty sick, but I wanted to write an update and tell you how my operation on my teeth went on Friday. When I left my mom and went into the operating room I never cried at all and that was the very first time. The nurse told my mom that I was braver then most adults that got operated on. The operation was longer than four hours, it was six and a half hours. After the operation was over, I was very very sick. I kept bringing up blood and I was very pale. My dentist who did the operation called me lastnight and talked to my mom, because he wanted to know how I was doing.

When I got up this afternoon there was flowers and a card waiting for me. It was from my dentist, and it helped me smile! I am in alot of pain today, and my throat really really hurts, from the tube they put down my throat. It takes alot out of me just to talk, to breathe, and to cough. I have alot of pain in my stomache, chest, teeth, and jaws. It hurts to chew right now, and I can't really keep any food down. My lip has a sore on it, and there is now paralysis in the lip again, so I have to do some majour therapy to get the use back. My head still really hurts too.

Tonight my dad told me that I am a real trooper, and that he doesen't know how I can endure everything that I do, like all the pain, and he said, you don't either, and I said nope, but I do, and he said I know, you sure bring tears to alot of people. He also said that I am a fighter, and that I am a real sweetheart. I am so lucky to have a mom and dad who love me and care about me, and that will do anything for me, to help me feel better.
Well That's all for now, please keep me in your thoughts and prayers.
Here is my email address if anyone wants to email me, feel free to at: hockeykid@telus.net
My MSN Messanger ID is: hockeys_life@hotmail.com If anyone has MSN Messanger and wants to add me to their list, feel free to. I love meeting new friends.
That's all for now.
Godbless Jenna

Thursday, October 14, 2004 0:00 AM CDT

Hi Everyone,
I just wanted to do a quick update before I go in for surgery tommorrow morning. I will be getting up with the birds, bright and early tommorrow. I am having my operation on my teeth, and my dentist is doing it at a private clinic here in Kamloops. It is day surgery and it is going to be four hours. We have to be there by 7:30am, and I go in at nine am. Please keep me in your thoughts and prayers that everything gose as planned. I may be in alot of pain tommorrow, but I hope not too much. I have had an upset stomache all night. I am abit scared, even though it's minnor compared to what I am used to. This is my 20th operation, so I guese, I better be used to it. I just get really sick afterwards, and I hope I don't get so sick. I will just remember my buddy Luky's words to me, when he found out I was having this done tommorrow. His words were, You will be ok, You will be fine, your a fighter, your tough, you've been through worse, and you'll come out with flying colors. I will be thinking of my hero Christopher Reeves, along with my hero, and buddy Luky. If Christopher Reeves, can be a real super hero in life, well so can I! I will update more tommorrow on how it went, or Saturday when and if I feel good/better.

Today, my life skills worker came over and I showed her some of my caringbridge, friends websites, and she really enjoyed it. She signed my friend Jonathan's guestbook too. It's nice to know that others I know are interested in what I do and what intrests me. We then went up to Aberdeen Mall and had lunch at the foodcourt there. We both had Sushi, but it wasn't that good, and it kept falling apart when I tryed to eat it. We saw my buddy Dave, and he sat down with us.

Other health stuff. My head has been giving me alot more pain then usuall lately. My stomache has been giving me some problems, and I have been getting an upset stomache. Well that's all for now and I will update soon after my operation.
Godbless, and Thanks for all the prayers,
Jenna
My Email address is: hockeykid@telus.net.
If you have msn messanger and want to add me, feel free to, at: hockeys_life@hotmail.com

Sunday, October 10, 2004 10:30 PM CDT

Hello Everyone! To those who are Canadians, HAPPY THANKSGIVING! I hope that you are all enjoying the long weekend. My week went pretty good, not health wise, but other than health wise. We were told on Friday from my doctor that there is nothing they can do for my head pains, and because none of the pain killers I tryed work, I just have to put up with it I guese. The pain is comming from the mussles and nerves from the jaw, and I have a lot of nerve damage as well. The pain is majour and as majour as my jaw in some ways, so it is hard at times to do things, with a majour headache. I have been suffering from stomache pains as well. I had a lot of good things happen this week, so that helped me smile.

I will start by talking about Thursday. On Thursday, I went and visited with my friend Jennifer. Jen, has CP, is in a wheelchair, and unfortanatly she is in an old people's home, and she is only 21. So I went over and spent some time with her. We went to 7 Eleven and I bought her a slush. After, I visited Jen, my mom picked me up and took me home. Then at eight o clock my parents and I went to my aunts surprise birthday party. We had lots of fun, and it was good to get out, even though I wasn't and still not feeling a hundred percent.

On Friday, my dad and I went to the hockey game. The Kamloops Blazers lost to Medicane Hat Tiggers. My buddy Luky's parents, and sister came from Alberta this weekend to watch the games. I got to meet all of them and it was sure nice chatting with them.

I had put Luky's picture in my photo album, and this lady Rita, who came across my site, is an artist, and loves to draw. So she drew Luky's picture and did a wonderfull job on it, it looks exactly like him. So On Saturday night at the game, I took two coppies with us to the game. One copy for his parents, and one for Luky. So at the start of Saturday's game, we met up with his parents, and they loved the picture. His mom said she thought that Luky would want to get it from me, so they sugested that we meet them after the game, and go down stairs of the arena. We won six to three! Luky, got two assists. After the game, my dad and I went to downstairs, and I got to give the picture to Luky, he was in awe, and he just loved it. Luky's mom must of showed his picture off to about ten people. This other player, Reid Jorgenson's mom, came up to me and said that she decided that I need another favourite, and asked if I could adopt her son, #34, and I replyed, that's Reid, I met him, and he is awesome! Anyways Luky also gave me a Kamloops Blazers hat, that you can't even get it anywhere, because they are strictly for the Players.

On Sunday, my mom, and I went to Cosco. I bought a drawing book, because I like to draw too. Then we went to Lac Le Juan and took my dog Coco out for a walk. We also went out for super at a Restaraunt, a chinese buffet place. I haven't been feeling well today, lots and lots of pain, but I continue to smile.

Things have been tough, and it has been hard for me to accept that there is nothing they can do for my head. It seems like there is always something else to add to the pain, and health wise, but no matter what, I am not ever giving up, and I am going to keep up fighting this battle.

Seeing as Thanksgiving is tommorrow, I want to just say a few Things that I am thankfull for.
I am Thankful, that I am still here fighting this battle, with a smile, always. I am Thankful for all of my relatives, family, and parents, who love, care, and support me. I am Thankfull for all my friends on the net that I have met, all my friends I have met through the hospital, and my other friends I have met through the years. I am Thankful for all of the help, and support that all my hockey buddies give me. This year I am thankful that I finally get to eat most of the Turkey Dinner, and enjoy if finally for the first year in six years. I am Thankful that I have a roof over my head, food to eat, and a place to sleep. I am thankful that I have family who love, care, and support me.

On Monday, today is Thanksgiving Day! Happy Thanks Giving Everybody! We are having our neighbour Sonny over for super. Sonny and his wife Ruby are from Tiwan. Ruby, went back to Tiwan for six months, because her son just had a baby boy, and he is so cute! So Sonny is here by himself right now, then he will be going to Tiwan in November.

I just heard some very sad news today. My hero, Christopher Reeves, (SuperMan, past away.) I found a make a wish for adults here in Canada and I was going to ask them to meet him, but I guese now I have to meet one of my other hero's, which will either be Saku Koivu, Mario Lemueix, or Lance Armstrong. Christopher Reeves, was one awesome person, and I was sent his books, and I love reading about him. He was always believing he would walk one day, and he gave me lots of hope and encouragment to keep battling my illness, like all my hero's do. Christopher Reeves, will be 4ever my hero, and remembered. Please remember to keep his workers, friends, and family in your thoughts and prayers. I am sure there are a lot of people who are effected by his death.

Those of you who have msn messanger, and like to talk and meet others, feel free to add me to your list. I love meeting new friends.
hockeys_life@hotmail.com
For those of you who would like to email me, you can email me at, hockeykid@telus.net
Please keep me, and all my other special friends, in your thoughts and prayers.
Jenna

Wednesday, October 5, 2004 0:10 AM CDT

Hello Everyone,
The start of the week has been going ok, though I am still having severe problems with my head, and knees, and legs, and not to mention my stomache. Tommorrow I am off to the doctor yet again. My pain is still a problem like always, yet some pain doesen't help with medication like my head for example. It is so frustrating because we don't know what's causing my head to hurt like it doese. Also I tend to sweat alot too, and that's a pain, especially when im at a hockey game and in public. My medication causes me to sweat but we don't know why. The reflux pill is working wonders for my GERD, I think that is the only pill that doese what it's suppoused to do.

Not this Friday but next Friday, the 15th, I am going for an operation here in Kamloops. It is going to be four hours and day surgery, but it is going to be major and a two part operation. He is going to take all the decae off and do something else with them, then in about six months I will have another operation to crown them. Both surgery's are going to be pretty majour. I am a bit scared already, and it's a week ahead. I know it's not as majour as my jaw and I am sure I"ll do fine, but every majour operation, no matter how majour it is, scares me. If I can get through my jaw operation, I can get through this, but I am still scared, because I tend to get sick lots with the anestetic. I am sure I will be pretty sore afterwards. I am having it done in a private clinic, because my dentist doesen't get operating privlages at the hospital.

On Monday, I had to go to the dentist so that he could take pictures of my teeth. They are really really bad. In case you don't know the story of my teeth I will tell you it. You see when I had so many operations on my teeth, my doctor in Vancouver, (not the one that did the operation in NC) he put wires on mouth and wired my jaw shut for a year, then again for two months shortly after that. Well he chose to put arch bars on them and guese what? I couldn't brush my teeth, and the doctor blamed it on to me, but it wasn't my fault, and my dentist couldn't even get to it. So now all my teeth are gone, and I them fixed. They are very badley gone. After the dentist, I went out with my life's skills worker. We went out to cowboy Coffee, and I cheated and had an ice tea. ( I am not normally allowed to drink ice tea because of the caffiene, and I can't normally have cafine due to my bladder condition. So anyways, after that we went to the bowling alley and we went bowling with my friend Ashton and her life skill worker, Marilyn. I wasn't feeling very well, but I had fun anyways.

Then today, I just stayed home, and I slept untill one o clock. I got some mail today, from my friend Kailtynn, who I met at Easter Seal House. She sent me a nice friendship card, and a Shrek 2 sticker album. I thought that was pretty nice of her. I love getting mail and it puts a smile on my face. Then at five thirty the handy dart picked me up to go to Bocci- Ball. I play Bocci, even though I am still pretty sick, I thought I would go again, cause it takes my mind off the pain a little. It wore me out though, and I slept on the handy-dart on the way home.
Well That's all for now, I will update again soon.
If anyone has MSN Messanger, feel free to add me on to your msn. I love making new friends and meeting new people. MSN Messanger email I use is: hockeys_life@hotmail.com
If you want to email me, then you can at: hockeykid@telus.net

Sunday, October 3, 2004 0:07 AM CDT

Hi Everyone,
My week started off ok, untill late Wed. night. I was complaining to my mom that my ear was really sore, so she went to put proxide on it, and it turned out that the whole back part of the earing, the stud, was right in my ear, and the doctor thought it has been in there a while. My left one was in my ear too, but it wasn't in as bad as the right ear, and my dad got the left one out. It hurt like crazy especially to lay down on it. So my mom had to take me to the doctor on Thursday. He even had problems trying to get at it. He put tons of freezing in my ear so I wouldn't feel it, when cut it open on the side, and then used his tweisers to get it out of there. It hurt worse when he got it out, then it did when it was in there. My mom said to me in the car, jokenly, Jenna what else are you going to come up with, and I replied hopefully not alot. Once we get over one ordeal another one comes along.

On Friday we went to the doctor again, for my head. I have been getting these really really bad headaches again. He gave me some longer lasting meds for them, but it doesen't seem to be doing the trick. Our family doctor always hurrys us out the door, that we forget to tell him important things. My leg has been really bugging me lately and we forgot to tell him about it. My mom is going to talk to him about my leg pain and see if we can do anything to help it. Right now I am using my crutches around the house and stuff.

On Friday we got tickets to see the world Championships, WHL's best hockey players that will be comming to Kamloops in 2006. We had to pay for them ahead of time.
Friday night my dad and I went to the Kamloops Blazers game. We won four nothing, Yahoo!!!!!! My buddy Luky, scored me a goal! I was so happy! Also my buddy Josh, who plays for the Prince George Cougars, was playing against us lastnight. So I got to see him play, and he almost scored a couple times. My dad and I even cheered for him loudly! I hope he heard us! hee hee!

On Saturday, I just stayed home. I slept in untill one o clock. I was really sore, and my head really hurt me, real bad. I listened to the blazers game on the radio, and I chatted with my friends on MSN Messanger. The Blazers played in Kennwick Washington tonight against the Tricity Americans. We lost against them two nothing. We play the Portland Winter Hawks on Sunday, which is tommorrow I hope we will win.

On Sunday I went out with my mom to safeway. I got to see a friend of my aunts and I talked with her for a few min. Then my mom and I went to Walmart then we came home. My mom made fahitas for super. As far as my health goese, my head has gotten worse. The pain is more severe, in alot more places.

Please say some extra prayers for me. I am having real bad head pains and they are just getting worse and worse. Also please keep my buddy Mac in your prayers. He is ten years old, and he was in an accident in school. He had to go into the hospital in an ambulance. He is out of the hospital now, but he was in there for three days, and two nights. He had to have surgery on his arm, because he broke it real bad. The bone, and bone marrow was exposed, and the arm still looks bad, but that was the best they can do. Mac's parents are the people who I stayed with for a month in july. His parents do respite for me, once a month, and for a whole month in the Summer. Mac says his arm is very painfull wich I am sure it is, please keep my special buddy Mac in your prayers.

I love reading comments in my guestbook, so please don't forget to sign it. I love chatting with people on msn messanger, so if you have it, feel free to add me to your list. hockeys_life@hotmail.com
I love recieving emails. So if you like to write feel free to send me an email. My email is: hockeykid@telus.net
Thankyou to all of those who put a smile on my face, even if you just signed my gueset book, you still made me smile!
Jenna

Monday, September 27, 2004 0:03 AM CDT

Hello Everyone,
I hope everyone had a good weekend. I
hope that you all have a great week.
I wish I could write this update and say things are great for me, but unfortanatly I am not doing very well health wise.
I am great as positive attitude
goese. My muscles in my head and jaw have acted up again, and they really
really hurt.
Friday night I kept waking up every two hours, because of the pain.
On Saturday I cried all day, because it was so painful, and I woke up
every three hours on Saturday night. Tonight I was in tears a little bit, and in pain alot.

Here is what I did this weekend.
On Friday, My dad and I went to Rick's Grill for super. I orderd the kids menu, like always, and I orderd grilled Salmon, and Fries.
I orderd soup for starters.
Then we went to the hockey game.
The Blazers lost five to three against the Portland Winter Hawks. On Saturday I went out with my life skills worker, and we went to the mall, and to Wendy's for lunch, and then we went to Riverside Park.
Then Today, which is Sunday, I went to the hockey game against the Everette Silver Tips. The Blazers lost three nothing.
The next game is on Friday against
my buddy Josh's team, Prince George Cougars, and our third game of the season, maybe we will win!
I can't wait to see Josh play, and cheer for him, even though
I am a Blazers fan. My dad and I have seen tickets for the Kamloops Blazers, WHL team.

I just want to thank Ginger for the gift that she sent me. She sent me a ty beanie baby that I sleep with everynight, some candy,
and some coloring pictures! I love them, Thankyou so much! I love recieveng mail, cards and stuff, it all makes me happy and makes me smile!

I love making new friends, so those of you who would like to chat with me, and if you have msn messanger, feel free to add me to your list.
My MSN Messanger Email is: hockeys_life@hotmail.com
For those of you would like to email me, feel free to, because I love recieving emails. My email address is: hockeykid@telus.net

I am enclosing a couple of newspaper articles of me, in my photo album.
One was when I went to disneyland and to LA, my hockey buddy payed for my dad and I to go, and he planned the whole thing by himself! Please continue to sign my guest book, as I love to read the comments, and I love meeting new friends and new people.
Please keep myself, my little friends,
and all the other kids, teens, and adults, who are fighting or dealing
with any kind of illness, and or disabilites.
GodBless you all,
Jenna
~Winners Never Quit,
Quiters Never Win!~

Thursday, September 23, 2004 5:10 PM CDT

Hello Friends,
Well yesterday my mom and I went back to the walk in clinic. My head started to give me problems again, and I was almost out of my medications. It is the muscles from my jaw that is the reason why it's hurting. The doctor that it could also be, because of over using the jaw, but is deffinatly muscles from my jaw. I have new meds now, and apparently those are the only thing that is going to help. It doesen't help all of the pain, but it doese help some of it, so I guese I will be on them all the time now. I still have pain in my head, and jaw. Yesterday I felt upset and frustrated. All I can think about is my buddy Luky, and how he made Sunday a specail day for me. Those that want to know what he did to make it so specail, you can check my journal entry that I wrote on Monday I think.

You see the reason why Luky helps me so much is because he cares, and he wants to help me beat this, and he has a big heart. It is not the fact that he introduced me to all the players on the Blazers, or that he got them to sign my Blazers Locker room sign, that is important, it is the fact that he cares that is important. Luky, and my buddy Jared Aulin, has always thought of me as their hero, and as someone that can beat these illnesses that I have been dealt with. They see me for me, and not for what I have. They are true friends and I am so thankfull for that. As my dad and I say, everyone who is beating and Fighting an illness, and not giving up, are Hero's! I am very proud to say that Luky has been named Captain for the third year for the Kamloops Blazers. Three of my favourite Blazers that I met Conlan Sedar, Cam Cunning, and Ried Jorgeson are all alternative Captains. Jared and Luky are also some of my many hero's in life too.

Even though things are tough for me right now, and at times I end up in tears because the pain is so bad, I try hard to keep fighting, keep smiling, and keep beating my illnesses and other challenges. I believe I can do this, even though it will take alot of hard work. I have a lot of people who believe in me, and I thank all of you who have wrote awesome encouraging things in my guestbook. Please keep signing my book, it means so much to me.

On Tueseday, My mom and I went to Chase, an hour from Kamloops. We went to visit a friend of hers and her daughter. Her daughter has some developemental delays. It was nice, and enjoyed the visit. She is a real Rick Hansen fan! Rick Hansen is a parapelegic and he lives here in BC Canada. Rick traveled all around the world to raise money for spinal cord injurys. I have had a chance to meet him, and he is so awesome. Anyways this lady's daughter, is a real fan of his, and has met him several times, and corosponds with him, so we had something in common. We had lunch together, and I kept her company while she did her laundry.

Then on Tueseday when I got home, I heard from my buddy Josh. Josh used to play for the Blazers, but just got traded 2 wks ago now, to the Prince George Cougars. I was afraid that I would lose contact with him and that he wouldn't be my friend, now that he moved away. You see that happened once to me, I was friends with a player and he got traded, and he hasn't had anything to do with me since he got traded. I have learned that Josh is different. He emailed me on Tueseday and told me, of course we can still be friends, and he wants me to keep writting me. He told me that he thinks I am awesome, and that he thinks his team will do well this year. He told me that he is living with some great people who treat him well, and that he likes the team.

Friday is the Blazers first home opener game. Of course being season ticket holders, my dad and I will be going to the game! I can't to see all of my buddies play! My mom is going away for the weekend, so it will just be my dad and I at home. So we will be going out for super tommorrow night, before the game.

Please keep myself, my buddies Jonny, Jonathan, and all the other caringbridge kids, and those who are fighting illnesses all over the world, in your prayers.
Here is my msn messanger ID: hockeys_life@hotmail.com
Those who have MSN Messanger and want to you can add me to your list. I love meeting new friends, and new people. Also if anyone wants to email me you can email me at: hockeykid@telus.net

Monday, September 20, 2004 3:08 PM CDT

Besides health isues yesterday was a great Day! My mom picked me up from my respites family's place, and went to the collesium to pick up our Kamloops Blazers Season Hockey Tickets! To my surpise all of the players were there, including my buddy Luky, (Jarret Lukin.) My mom and I talked with him for awhile. Two other players came by and Luky said have you met Jenna yet, and so I got to meet Conlan Seder, and Reid Jorgeson. They were so nice, and very friendly. One of them even saw me in the news paper, when my buddy Jared Aulin sent my dad and to LA, and to DisneyLand, last year. Then we went in to the Blazers store, and I was going to by a Blazers locker room sign to put on my bedroom door, plus a Blazers sweater! To my surprise, Luky was standing right beside me and I asked him to sign it for me. I was just about to buy it, and the sweater, when Luky asked how much the sign was. He was told it was five dollars, and he said, I will buy that. So he bought it for me, and I bought the sweater for myself.

Then afterwards I wanted some more players to sign it, so I went and asked him if I could get him to help me get some more players to sign it. I also told him that I really wanted to meet Cam Cunning. He said lets go do that right now, so I got to meet Cam. Then to my surprise Luky told me to come with him, and I got to meet all of the players on the team, as he got all of them to sign it! Luky is one very specail and awesome person! I am still high in the sky about yesterday!

I have learned alot from Luky, and all the others, along with my parents and all my other relatives. Luky has taught me not to get depressed when things are tough, and now I just take it one day at time, and smile, and say people believe in me I can fight this with all my might. Because of what Luky and others have taught me, I no longer get depressed now when things get tough.

My dad and I watched Oprah today, and they had a tribute to Matty Spanick. He was only ten years old, yet he was a true hero on earth, and he is now a hero in Heaven! I said to my dad, I wish I could be a hero like he was. My dad replyed with tears in his eyse, Jenna you are a hero, because you are a fighter, so that means you are hero. He also said that he hopes my health doesen't get worse then it is, but if it doese, I just have to keep up my good spirits, just like Matty did. I just have to keep fighting and keep living life to the fullest, and reaching out to others, wich I am very thankful that god gave me this gift.

Also Conlan and Reid had about a fifty stack of Blazer stickers, with them, and Conlan was trying to get rid of them. So we said we would take them. My mom told him that it was because I reach out to kids with illness all over the place through my website and their website, and I will send them to kids. They were pretty impressed, and Conlan said, She was in the news paper with Jared Aulin!

As for my health issue's, Things are still pretty painful. I am experincing lots of pain from jaw, in the bones. I am experincing severe pain in my legs and my knee joints. I got sick to my stomache yesterday, which was not good, as I don't like getting sick, as I am sure no one doese. Everytime it seems like I am getting better, I replace one thing after another.

Today I am not feeling well at all, and I have a bad head ache again, not as bad as it was, but it was pretty bad. I feel shaky, and dizzy, and my stomache is in alot of pain, Yet I do not stop smiling, and I still keep my positive attitude in life. Please keep me in your thoughts and prayers.
Anyone who has MSN Messanger and would like to talk with me, or loves making new friends, feel free to add me to your list if you want. MSN Messanger ID is: hockeys_life@hotmail.com
If anyone wants to email me, please feel free to email me at: hockeykid@telus.net
That's all for now, and please keep signing my guestbook, especially if you are new.
Godbless Jenna.

Thursday, September 16, 2004 3:15 PM CDT

Hi Friends,
My headache is very very painful, and I went to the doctor this morning. It turns out that I don't have migranes, but that the pain in my head is a muscle, from my jaw. The doctor doesen't know what is causing it though. It is very very swallen as well. He gave me some pills, so we will see if this helps. So far it isn't working, but we will see. I have been in tears all day because it hurts so bad. Yesterday I took two Tyonel three's and that didn't take the pain away, two moriphine, and that didn't work. I even tryed an ice pack, and my buddy and that didn't work either.

My friend Josh Garbutt got traded from the Kamloops Blazers to the Prince George Cougars. I was very upset when my dad told me, because I am afraid that I am going to lose Josh as a friend, now that he lives in PG. I am still going to cheer for him this season when he comes here to play the Blazers. I hope he goese out there, and shows our coach that he made a big mistake getting rid of him.

I have been having severe leg pain as well. It has been too painful to walk on it. So I have been using my crutches. I am not feeling very well at all, so I am going to go lay down. I just wanted to do a quick update and let everyone know how I am doing. Please keep me in your thoughts and prayers.
If anyone has MSN Messanger and would like to, you can add me on to your list. My msn messanger account is: hockeys_life@hotmail.com

If you would like to email me, you can do that too. My email address is: hockeykid@telus.net

Tuesday, September 14, 2004 10:07 PM CDT

CANADA'S GOT DOANER!!!! MY BUDDY, MY HERO!
Shane, got the Winning goal tonight! YAHOO!
For those that don't know I met Shane Doan this Summer, August 5th, 2004. I have pictures that I will put up as soon as I can! Shane is an awesome player, Leader, Person and a great Hero to have! We won the gold Medal! Go Canada Go! The Doan Line did awesome tonight, and so did the IGGY line! All the players did fantastic through the whole series! Marty is one awesome GoalTender!

BLUES BOY SHINES AT ROOKIE CAMP!!!!!!!!
2 GOALS, AND 2 ASSISTS!!!!!! My buddy Jarret Lukin, (Luky) is at the ST. Louis Blues Rookie camp right now. He has never been drafted, and he is 20 years old. He was given a try out deal by the ST. Louis Blues. So far he is doing great! I hope he makes a great impression, and that he either gets signed by the Blues, or they draft him. My dad had tears of joy in his eyse when he found that out!

As for me, well things aren't going that great health wise. I have been starting to get sick to my stomache, again. Tonight at Super and before supper I got sick. I am having really really bad headaches. My aunt who is a nurse thinks that I may suffer from Migranes. So we will be going to make another trip to the doctor soon. I have been suffering alot from very sharp paines in my jaw, today.
That's all for now.
Here is my msn messanger ID, If anyone wants to add me to their list, I would love it, as I love chatting with new people!
hockeys_life@hotmail.com
If you want to email me, please email me at: hockeykid@telus.net

Friday, September 10, 2004 6:05 PM CDT

Dear Friends!
Thanks for taking the time to check up on me, and keeping me in your thoughts and prayers as always, it helps a great deal, and I really appreciate it. This week has been a difficult and hard week for me. On Tueseday night, I went to sleep at 12, then I woke up at 1:30 and I just couldn't go back to sleep. I had severe pain, and four thirty I finally got the urge to wake my mom up, because the pain was so severe. She then put a pain patch on me, and I took a Dilatin. I didn't finally got to sleep untill seven in the morning and woke up again at eleven, and was in so much pain, I just stayed up!

On Wed. My good hockey Buddy Luky, (Jarret Lukin) left for St. Louis. He is twenty and he got a try out for the St. Louis Blues training camp. Please keep him in your thoughts and prayers over the next couple of weeks, while he is there. I just pray and hope that he has Confidence in himself, that he doese great, and that impresses the Coaching staff, and the management there. Jarret has never been drafted, and he is in his last with the Kamloops Blazers, WHL Team here, in Kamloops. He is a great Leader and a great player, and I really hope things turn out for him, because he is a great person, and he really needs, and also deserves to have something good come out of this experince. Maybe the Blues will like what they see, and want to draft him, and then sign him! That would be great! I am Smilen Extra hard for YA, Luky! You Can Do It!

Also on Wed. Team Canada Won! Iggy, did an awesome job, and so did Mario Lemueix, Dany Heatly, and Joe Sakic! That line did wonders, and I was so excited that Jarome got the MVP award! They won five to nothing, and move on to play the next game. They have won four games straight so far!

As for my health on Wed. I had a bad reaction to one of my meds. I have been getting sick again lots, and on Wed. I had an extremly bad reaction. My whole body felt shakey! My legs were shaking uncontrobly, and so were my hands. I was very very cold, felt hot, and my heart felt like it was beating very very fast. It only lasted a day, but I hated that feeling, and feeling like that.

On Thursday, the pain never improved. I at a hamburger with double patties for lunch, even though my jaw was so sore. I went to Walmart just to get out of the house for a couple hours. I saw some people I knew there. Then we went to wendy's and brought super home.

Today, which is Friday, My mom and I went to Macdonalds for lunch and I had a chesseburger. Then we went to my doctors, the one that diagnosed me with my bladder condition. He figures that one of the meds. I am on, may also be making me feel yucky to my stomache. So he wants me to go off them. He also wants me to go off another med. as well. The other med that he wants me off is for my bladder condition. I have a great deal of pain today, and I am feeling sick, but I haven't taken the Dilating for a two days, and that is the one he wants me off of, it is for my pain. He also wanted to make sure that I didn't have an infection, so I had to do a spesiment. Then tonight I am volenteering at this Specail needs teen night. It is for specail needs teens, physical, and mentally disabled to meet friends, and do fun stuff with kids their age. Tonight we are having a bowling birthday bash party at one of our local bowling alleys so that should be fun.
please keep me in your thoughts and prayers as always. I love meeting new people, and friends. So if any of you have MSN Messanger and would like to keep in touch with me you can add me to your msn list, if you want.
My MSN Email is: hockeys_life@hotmail.com
Or You can feel free to email me, as I love recieveing emails from anyone. Here is my Email:
hockeys_life@hotmail.com
Also if anyone wants to know more about my illness or me, you can go to my other website.
www.matmice.com/home/fighterandchampion
Please feel free to sign my caringbridge guestbook, or my other book on my matmice site, as I love reading the encouragements and comments everyday.
Your friend Jenna

Tuesday, September 7, 2004 2:19 PM CDT

Hello Everyone!
Thankyou so much for all of your kind words in my guestbook, as alaways. I look forward to reading them, everyday that I wake up. Things here have been going good, even though I have not been feeling very well, and have been feeling awful tired lately. Two nights ago, I went to bed at 10 and was a sleep by 11. I think it is from my medication. Yesterday I have gotten sick twice, and we are hopping that it is not the sign off the medication not working. Hopefully it just needs time to adjust and for my body to get used to the new medication. I still feel pretty sick, like I am going to get sick, but I don't usually, but sometimes I do. I have been in alot of pain lately. My right jaw has started to be very painfull again like the left jaw is. I have great news though from my last jaw x-rays. They are looking great, and my doctor in NC, at the UNC Hospital in Chaple Hill, is very pleased with how everything looks, so that takes a load of our shoulders, and it is nice to know that even though I am in tons of pain, my jaw's are working, and slowly healing from the operation. I am having lots of head-aches lately and we are unknown what is causing it. I at least get five headaches a day, which are very painfull. I usually have to take two tyonel three's with Codene, to get the pain to settle down. My mom is slowly weaning me off the Fentanyl Patches, so that could be the cause of the head-aches, but we don't know for sure.
The other night, I watched Russia beat the Czecks! My buddy Frolov, yes the one that is in the picture with me, he got two goals, and an assist! Tonight I will watch the USA game, and hopefully USA will beat Russia, and Alex! That young guy for Russia, his name is Alex too, and he is pretty good! He got his first goal and he is only 18! My team the Capitals picked him up! Ya! Well that's all for now. Please keep my new friends Kimberly, Shawnee, and Kenya in your prayers. Also please keep my buddies Nolan, Jonathan, and all of the other kids who are fighting from Cancer and all the other illnesses out there.
Thankyou for keeping me in your thoughts and prayers. Please be sure to visit all of my friends websites, that leave their websites in my guestbooks, and let them know you care. Thankyou again for comming and visiting me, and thanks for all the support, all of you have given me, (you all know who you are!)
Godbless you all,
Love Your friend Jenna.

Friday, September 3, 2004 10:20 PM CDT

Today I went to the doctor and I got some new medication it is called, Metocloprmide, and alot of cancer paitence use it for chemo and nausea. I took one so far, and it seems to work so far. I ate my whole super without getting sick! Yahoo! I am having a lot of pain in my jaws and stomache today though. I also have bone graphs in the bottom of my mouth due to my jaw operations and mouth braces. I am still having these horid headaches, and other pains. I am glad that we got the nausea and the GERD handled, because I was starting to hate running to the bathroom so much! I went out with my life skills worker today. We went and picked up a handy capped wheel chair sign. Then we went to Wendy's and to Walmart to pick up medication, and to the dollar store. That's all for now.
Jenna
MSN Messanger: hockeys_life@hotmail.com
and My Email address: hockeykid@telus.net I love meeting new people.
Jenna

Tuesday, August 31, 2004 10:00 PM CDT

Hello Everyone!
I am still extremly sick, and I am still not able to keep my food down. My stomache is full of pains and I feel pretty awfull. My mom is taking me back to the doctor and is going to ask for some medication for my GERD. My dad and I went to the blue and white game for the Blazers. I got to see my buddy Luky, and he gave me knuckles. I got to see my other buddy Josh too. My buddy Ajay was there, and my dad and I sat with him, and his buddy Brett Draney. I got to meet Brett Draney, Steve Gainey who are both hockey players, and I met Cody Becker who plays for the Blazers. Steve, is just like Jared and Ajay. I was excited that I got to sit with Class! Those of you who watch the Canadian team, keep your eyes on my buddy Shane Doan! My dad and I watched the game tonight, and Canada one! Go Canada Go! MSN Messanger ID: hockeys_life@hotmail.com
Here is my Email address: hockeykid@telus.net
Please continue to keep me in your thoughts and prayers. I have been feeling pretty frustrated, because I hate being sick all the time, and I feel pretty awfull.

Thursday, August 26, 2004 2:56 PM CDT

Hello Everybody!
I am still getting sick every time I eat food! The anti-acid's the doctor gave me aren't working, and my mom said, why didn't he just give you real medication to settle it down. I said good question! So she said she will have to take me back to him, if I am still getting sick, and if the anti-acids hae gave me, doesen't start working. Yesterday I went to the dentist, so my jaw is really hurting. We went to Dairy Queen for lunch, and I had an icecream for desert, and I ended up getting sick afterwards. Then we went up to the hospital and I had x-rays taken of my jaw, and then today we sent the disk to my doctor in North Carolina, at UNC Hospital.

I called Jared when I got home, and I talked with him for a few minutes. We talked about me, and how I was doing. I told him about my new Reflux Disorder, and that I was frustrated trying to accept another disorder. He helped me accept it, and told me that I can't give up, and just gave me some good advice. He helped me not think about it for a few minutes, and helped me learn that I have to fight every single day. He said that everyday he has to fight the challenge of getting better, at his hockey career, by training, practicing and not giving up during the hard times. He said that everyday that I get up there is always a battle and a challenge that I get have to face and beat if I want to get better. I told him I wouldn't give up, and that no matter what I can beat this, and he was very pleased at my attitude, and he said, that he already knew that. I asked him how he was doing, and he told me good, and that he was training and that he is playing for the Washington Capitals this year, if there is no lockout, but if there is then he said he will be sent to the Capitals Farm team, the Portland Pirates. He wasn't that happy about it. I asked him if he heard anything about the lockout, and he said it didn't look good. So I am praying that there won't be a lockout and that he will be playing in the NHL!

My Buddy Luky, (Jarret Lukin) got an offer to try out for the St. Louis Blues. That might not mean anything but I hope it turns out to be something! Luky is 20 and is getting ready for his fifth year with the Kamloops Blazers. Luky, is only five foot ten, and there for he is small, and not many NHL Teams are picking up small players anymore. He is a great hockey player and has everything it takes to be a good hockey player. He works hard, and puts out every single game he plays, and he is a hard worker, and great person and hockey player. He hasn't been drafted yet though, because of his size, but I sure hope that the Blues like him, and pick him up. I got my pictures of Shane Doan and I, in the mail yesterday. They look awesome!

Well that's all for this update today. Please keep me in your prayers, and please sign my guestbook, especailly if you are new to my site. I love meeting and making new friends, so if you have a website please be sure to leave it with your geustbook entry that you leave in my guestbook, and I will be sure to visit your website too. Please leave your email address too, if you want and I will be sure to email you as well.

I love making and meeting new friends. If you have MSN Messanger, and if you want to add me on to your list, I would be more then happy if you do add me. I love chatting on it, and meeting new friends and people. I would love to chat with anyone who wants to add me, so feel free to add me to your list.
Here is my MSN Hotmail Account: hockeys_life@hotmail.com

Also if you want, you can send me an email too. I love recieving and writting emails. So if you do email me, you will for sure get a reply back. My email address is:
hockeykid@telus.net

Tuesday, August 24, 2004 10:40 PM CDT

Today was a pretty busy day. I am still pretty sick, but I did go to the doctor today. I have been diagnosed with Refulx Disease, and instead of medication for it the doctor gave me just these acid things, which aren't working. My mom is like, why can't he just give you medication for it, to get it settled down at least. So if these acid things don't work then we have to go back for actual medication. So far it is not working. My friend Taryn came over today as well. We watched a movie, and just talked. I had lots of fun, and tommorrow I get to go to the dentist. Things are a little frustrating for me, cause that's all I need is another disorder, but there is nothing more I can do, but smile and keep my head up. I am getting excited about hockey season again. Hockey is comming up in September for the Blazers the first game starts September 24th, and tommorrow, hockey training camp starts for the Blazers. The Canada Cup has already started too! Go Canada Go! Well that's all for now. I will update again.
Please keep me in your prayers.
MY MSN Messanger: hockeys_life@hotmail.com
My Email: hockeykid@telus.net

Friday, August 20, 2004 11:41 PM CDT

Hello Everyone!
I slept alot better lastnight, but today was wrose then yesterday. I am having very sharp pains in my stomache today, and still very tired lately. I have got sick alot of times today. I went with out with my life's skills worker today, and she brought me home early, because I was really sick, and in tears, because I was feeling so rotten. We just made tuna sandwiches for lunch, and watched a movie, and I went to the post office today to deliver some packages. My mom phoned my doctor and made an appointment for Tueseday, because that was the earliest, and she wanted to get me in as soon as possible. I heard from my buddy Brandin today as well, and he is getting ready to head back for another hockey season in the AHL. Well that's all for now. Thanks for your prayers and support during this tough and hard time.
Godbless,
Here is my MSN Messanger ID: hockeys_life@hotmail.com Feel free to add me to your list if you have it, and if you want to. I love to chat and make new friends.

Also, feel free to send me an email too, because I love emails.
Email Address: hockeykid@telus.net

Thursday, August 19, 2004 10:24 PM CDT

Hello Everyone! Well today has not been the best day. I woke up at five in the morning, sick to my stomache, and in severe pain, every where. I tryed to sleep but I couldn't, so finally at seven, I got up and told my mom and she put a pain patch on, but it has still not helped me yet today. This is getting to be a bit much, and it isn't fun getting sick every single day more then twice. It concerns both of my parents because my condition has worsen, because of getting sick to my stomache, and the sudden severe pain. I have a very high pain tollerence the pain is so bad right now! I am still in high spirits, and all smiles, even when the pain is too bad, and if tears run down my cheeck, sometimes when I think of one of my hockey buddys, I start to smile! I am getting very very tired of this vicsous circle I keep going around and around in. No matter what I go through, I am going to keep fighting!
Please keep me in your prayers, as I need alot right now, and my parents too please.

On a more positive note I ate two cheese Burgers from Wendys, with pickles, cheese, onions, and tomato on it, even though I am in alot of pain in my left jaw, I just ate on my right side instead of the left! This lady, who took pictures of me and Shane Doan, called me to say that the pictures were ready, and she sent them off in the mail, so I am very anxious to see them!
Here are my email addresses:
MSN Messanger, anyone who would like to be friends with me, and has MSN Messanger, you can feel free to add me to your list. I love making new friends, meetign new friends, and chatting on msn.
Email: hockeykid@telus.net

Tuesday, August 17, 2004 11:22 PM CDT

Hello Everyone,
I don't have too much to say today so it will be a short update. I am still continueing to feel awfull and in lots of pain. What is really getting to me though is this awful stomache sicknes that has been carrying on for four days straight now. We are unknown what the cause for it is, but we think it can be due to my pain meds. I was in my room on my bed when I started to get tears down my cheek because I hate feeling this awful. I went out to the living room to see my mom, and she saw that I was in tears. I went and sat with her, and my dog started to get jeolus, so he came and jumped up, and on both of our stomaches! It was too Funny! I miss Jared during times like these, and I wish he was still here, cause I don't get to see him often only about once a year, unless he gives us tickets to see him play hockey in person. Hopefully this year he will be able to play in the NHL. Even when Im eating, I get sick, and I can't seem to keep the food down. I talked to Jared the other day on the computer on MSN. He reminded me how strong I am, how much I mean to him and everyone else, and he reminded me not to give up. He also told me that alot of people including him, believe that I can beat this. My dad called home today. He is having a great time out in Clearwater, and he caught another fish. He asked how I have been doing, and I told him. He was very concerned and wanted to know what would be causing it. I told him I wasn't sure, but that my mom thought it was my medication. My dad, thought it was my medication too. We aren't too sure what's causing it, it is just a good guese. My dad said that I have been on these meds for too long, and he is right, I have. Also I have been having pain in my neck as well.
Here is my friend Jonathan's site. Please keep him in your prayers. He loves to read comments just like I do, so please sign his book if you want, if you go and visit his website.
www.caringbridge.org/nc/jonathan. He goese to the same hospital as I do in North Carolina.
Please keep me in your prayers.
Jenna
My MSN Messanger ID: hockeys_life@hotmail.com
Email: hockeykid@telus.net

Saturday, August 14, 2004 10:34 PM CDT

Hey Everyone,
I haven't been feeling very well today. I have been feeling upset to my stomache the last couple of days. I have felt worse lately after I take all of my medication. My jaw has been hurting alot, and I still get numbness in my jaw. I haven't been sleeping well lately either. I am having alot of problems with my knee joints as well, and it has been hard to walk lately. I went to Hot Night In The City Today with my mom. It is an old Antique Car Show, and it has some newer cars as well. It was a very hot day today. Please continue to keep me in your prayers. Please go and visit my friend Jonathan's website and sign his geustbook. We go to the same hospital in North Carolina.
www.caringbridge.org/nc/jonathan.
If anyone wants to email me or add me to their list if they have MSN Messanger, I would love that, because I love meeting new friends.
MSN Messanger ID: hockeys_life@hotmail.com
My Email Address: hockeykid@telus.net

Thursday, August 12, 2004 10:04 PM CDT

Hello Everyone!
Today was a pretty good day. For three days so far my left jaw has been numb totally on the outside and on the inside. I can't even feel it when I try to eat on it. This is very iritating as well. I have been having severe pain in the head as well, and lots of severe pain where the stiches were, below my neck. I am having alot of knee and side pain today as well. My mom and I went to Mr. Mikes for super, and I had the salad bar. I also got to rent five movies as well. I rented The Prince And Me, Gerry, New Comers, Chasing Liberty, and Local Boys. I also bought a playstion game and it is Wheel Of Fourtane.
Well That's all for now.
My MSN Messanger ID: hockeys_life@hotmail.com
My Email Address: hockeykid@telus.net

Sunday, August 8, 2004 11:25 PM CDT

Hello Everybody!
Lastnight I had an awesome time at the Blazers Alumini game. I got to sit right behind the Blazers bench, and I snuck my head out the side when all the players on our side wen on to the ice! Jared, and Ajay both saw me! Yahoo! During the intermission they had autographs in the penalty box. This year I got to go right in the penalty box, and I was so happy! Scotty Upshall from the Nashville Preadators, signed my NHl All Star Hat. I got to talk with Jared, and this player Ryan Ansley who I talked on the phone with once when I called Jared. Ryan asked me how I was feeling and stuff, and I didn't even know who was at first. So I asked and then I said oh oops, when he told me! Eric Brewer signed my Oilers Jersey, and I got to see my buddies Kris, and Luky!

I had a real dispointment today. I wasn't feeling well at all, and I don't handle disapointments to well, when I am feeling sick. Jared told me last night that he would call me today, and he might stop over. I didn't care if he had time to come over, it would have been nice, but all I really wanted to do was tell him how I was doing, and stuff, cause I never got to lastnight. His cell wasn't even on all day, so I know something must have came up, because usually when he says he is going to something he usually keeps his word. I sure hope that he calls me tommorrow, I would love it!

My head was in severe pain today, and I woke up at nine in the morning and couldn't get to sleep. I eventually did, and I felt sick all day. I got sick to my stomache and my jaw ached with severe pain. I am also having problems with my knee joints as well. I think I reacted like I did today, because partly the reason is all of the meds I am on, they make me teary eyed, and make me feel misirable and crummy.

I met a new friend lastnight at the Blazers Alumini game. Her name is Taryn and I told her that I made my own website. So today I guese she sercehed for it online, and signed my guestbook, and sent me an email. Thankyou Taryn! Also I got some pretty nice comments from this boy Nolan and two of his friends, Thankyou guys, I appreciate it. I packaged Jonny's and James gifts up tonight so we can send it tomorrow.
Please sign my guestbook and keep me in your prayers.
MSN Messanger: hockeys_life@hotmail.com
Email Address: hockeykid@telus.net

Thursday, August 5, 2004 2:30 PM CDT

Hello Everyone!
Well I am still feeling pretty rotten, due to all this pain and sickness, but my smile is still Fighting through that pain! My spirit is also still at the top! I am in severe jaw, and stomache pain still. I can barely open my left jaw today. My knee joint is starting to bother me as well. I have another majour and severe headache.

I got to meet one of my all time Favourite Hockey Hero! My dad and I went to the Dunes golf course, here where we live. Mark Recchi from the Philadelphia Flyers, and Shane Doan from the Pheonix Cyotes, put on a Charity Golf Tournament every year, to raise money for a local child growing up here in Kamloops, with a disability or an illness. It is called the Recchi and Doan Charity Classic. Mark Recchi was born and raised here in Kamloops, and Shane played here for the Kamloops Blazers. Last year I got to meet Mark Recchi.

This year, I got to meet my hero Shane Doan! It was so awesome! My dad and I talked to him for about fifteeen minutes! I got some pictures taken with him, and he signed my NHL All Star Hat. He wrote: Jenna: To My Hero, and signed his name. I told him all about my illness, and why he was my hero, and that I reach out to others through my website. He even asked me for my site, so I wrote it down, and gave it to him. Shane is one awesome person. He is going home to Pheonix tomorrow, because his wife just had a baby girl, their third child, and also his daughter is five and is starting kindergarten, so of course he has to be there for that. I know when I was starting kindergarten for the first time, it was important to me that my dad was there too.
Meeting one of my hockey hero's made me smile the rest of the day.
My Email Address:
hockeykid@telus.net
MSN Messanger: hockeys_life@hotmail.com

Tuesday, August 3, 2004 11:58 PM CDT

Hello Everyone!
Well today was an ok day. I have been feeling very rotten and ill, lastnight and today. Last night, I kept waking up lots during the night, due to severe Stomache/side pain, severe nausea. We think that it is related to either my bladder condition, or my medication, but right now, we are unsure whether that is the problem. My jaw has hurt worse today as well, on the left side. I always dread feeling this awful, because it is a very rotten feeling.

Today, I went shopphing for a care package for my friends Jonny and James. Jonny and James, live in Mckenzie BC. Canada. For those of you who aren't famillare with Jonny's story, I will fill you in briefly, and if you want to read how specail he is, as well as James, and their mom and dad, you can just read my latest update in the Journal entries. Jonny is six years old, and James is eight years old. My dad and I have known them since Jonny was two, and James was four. Jonny, has had ALL (cancer) since he was two years old. He just recently relapsed for the third time. His brain is full of tummours, and he doesn't have long to live. They can't do any more radiation or Chemo. He has to get daily spinal fusens done, and so he is living in Vancouver at Easter Seal House. He and his brother are one of my bestfriends that I met at the Childrens Hospital, and they stay at Easter Seal House in Vancouver BC. Canada, just my dad and I. Jonny is a fighter, and one of my many specail hero's! I bought James a Spiderman hat, a Basketball t-shirt, and Bionalce lego. I bought Jonny a Spiderman hat, a Spiderman pillow, a little mini sports thing that comes with two nets, a little soccer ball, two hockey sticks, and a puck that he and James can play together. I bought him a Spiderman Stick Splat catch, that he and James can play together, because it comes with two catchers, and two balls. I also bought him a 70 peice Ninja Turttle Puzzle, that he and James can do together. I bougt myself a couple things to do with Spiderman two. I saw Spiderman2, in the theater's on Saturday, and I liked it so much, that i want to by the DVD. I also bought myself the game Phase Ten.

Please sign my guestbook, because I love reading the encouragement during tought times like these, and please remember to keep Jonny, and I, and all the other kids struggling with any kind of illness in your prayers. I love recieving emails, talking on MSN, and making new friends, so if you would like to, you can send me an email, sign my guestbook, or if you have MSN Messanger, please feel free to add me to your list if you want to, and I will reply to anyone who wants to keep in contact with me.
MSN ID: hockeys_life@hotmail.com
Email Address: hockeys_life@hotmail.com

Monday, August 2, 2004 0:19 AM CDT

Hello Everyone!
I am now at home, and I am happy! I get to see my mom and dad again! Three weeks was awfully long. Well my left jaw joint has worsen now. I am back to not eating much again. We will be going to Vancouver sooner than October for xrays. We still feel that there is something wrong with the left jaw, because it has worked properly at all since it has been in there. Today I have felt really awful all day. I have been really nauses all day, and sick to my stomache like always, due to my pills. My left side of my jaw is so painful today, that I couldn't even touch it, or touch food with it. My mom is trying to get me to eat on it, and I have tryed but it just keeps hurting more and more, and getting worse and worse. A couple nights ago I woke up with so much pain in the back of my head, I thought that it was going to burst! This is the sixth day in a row that I have had a headache.

I went and rented five movies tonight, and we don't have to take them back for a week. My friend Todd works at the video store. He gave me a slip for a free movie the next time I want to rent one. I rented Love Actually, and I watched that one tonight with my mom, and it was a cute movie, and pretty funny too. I rented I"ll Be There, Going Greek, What A Girl Wants, and Sweet Sixteen.

I have been very quiet since I got the news of my buddy Jonny. My dad told me a little story about Jonny, that I want to share. When my dad, Jonny's 8yr brother James, their mom and dad, and my dad, all went to the Sympathy of fire in Vancouver BC. It is fire works put on by all of different Countries. They went to the Japan Fire works. There were these firemen collecting money for BC's Children's hospital. Jonny says, I got to Children's! I have Cancer and Im dying! His mom and dad got tears in their eyes, and so did I, when my dad told me this. Jonny is only six and has faught a long and hard battle with ALL. Now his whole brain is filled with Tumers. You know what the firemen told him, they said, you don't look sick. He doesen't look sick, he is so happy, and always smiling, and he reaches out to anybody. Like any child who has cancer, or a terminal disease, Jonny is to young, he doesen't deserve this, yet Jonny is still Jonny and nothing changes. I am sad, but you know what I am happy. Why I am I happy? Because Jonny is happy. He is still fighting, and he is still living, and he will continue to keep living untill his time is up, and bless all who know and love him.
I am Lucky though. Why I am I lucky, because I am still hear fighting, and living life to the fullest, I have faught my battle for 23 years, and I will continue to fight and win this battle! I am a Hero, Fighter, as well as Jonny, we encourage eachother through good times and bad. Every night before I go to bed I thank god for Jonny and all of my other special friends who have touched my life. Everyday he needs spinal fluid done, and everyday he is brave and strong, just like me. I am determine to beat this life threatening disease too, and Jonny is determine to still keep fighting, and living even though he only has a few more months. GodBless you all. Please keep me, and Jonny in your prayers. Please keep the encouragement comming in my guestbook, it helps alot in times like these. I am worried about my own health, but I always put others first, and I love encouraging others, cause it helps me.
Messanger ID: hockeys_life@hotmail.com
hockeykid@telus.net

Friday, July 30, 2004 12:17 AM CDT

Hello Everyone:
I got some very upsetting news lastnight from my dad. My dad was in Vancouver lastnight staying at Easter Seal House, and two of my best friends were there. My dad put them on the phone, and I got to talk to them. Jonny is six and his brother James is eight. It was so good to be able to talk with them. Jonny has cancer and he is on his third relapse. They can't do anymore radiation or chemo. His brain is full of cancer and he doesen't have very long. They figure about two or three months. He got a wish from make a wish, and he is going to Newfoundland to his cousins wedding, because it may be the last time they all see him. My dad said that Jonny doesen't even look sick, and I believe it, because Jonny never looks sick. He is always happy, full of joy, and always smiling! They went to a football game lastnight, and he was so happy and so excitied. My dad went to the fire works that they have down there, from different Countries, and he went with Jonny, James, and their mom and dad. This is upsetting news for me, because I think the world of Jonny! Jonny and I, in my books are both hero's, and Fighter's, and we never stop fighting, we just keep living, and smiling! Please keep Jonny, his family, myself, and my dad in your prayers. I was thinking about getting a little care package together and sending it to him.

As for me, I am back to not eating much again like before. We aren't sure what is wrong with my jaw, but hopefully we will be able to find out. My mom is thinking about us going back to North Carolina to see my doctor. that's all for now and please pray for Jonny, myself, and all the other brave fighters out there, especially the caringbridge kids.
Godbless you all

Wednesday, July 28, 2004 3:46 PM CDT

Hello Friends!
I have some great news! Yesterday I went to do my lip exercises and I had to look in the mirror well I discovered that my lip isn't crooked anymore! Yahoo! It's back to it's normal self! I am not eating much again, as my left jaw has stopped working and is in severe pain all the time now. My right jaw is in alot of pain now too, but Im still trying to chew, but it's very hard. I will have to get x-rays soon. Please keep me in my prayers, and please pray that nothing to serious is wrong with it. I have been through alot, yet I am still very determined to fight and never give up. I still can't use my lips yet, but I am very happy about my smile! Now I really have something to smile about! Well that's all for now.
MSN Messanger ID: hockeys_life@hotmail.com
Email: hockeykid@telus.net
Here is my buddy Jonathan's website, and please sign his guestbook, he loves meeting new friends. Please keep him in your prayers.
http://www.caringbridge.org/nc/jonathan

Monday, July 26, 2004 3:16 PM CDT

Hello Everybody! I really enjoyed spending all day yesterday with my dad. We went to the park and then to a barbeque. I wasn't feeling that great yesterday, too much pain, and today I am still in pain. My doctor emailed me back, and I need to get x-rays done of my jaw. He said that it could be muscel spasms, infection, or joint displacement. Please keep me in your pain. The bone is burning a whole lot. On the fourth of August, I get to meet some more hockeyplayers for sure. I really want to meet Steve Gainy and Shane Doan! Ajay will be there, so I get to spend a little time with him.
MSN ID: hockeys_life@hotmail.com
Email Adress: hockeykid@telus.net
That's all for now.
Jenna

Friday, July 23, 2004 7:36 PM CDT

I went to the clinic yesterday and they took the stiches out. My ear was infected too, the ear drum. I bought a big Spoungebob Pilliow. Jarome Iginla, and my buddy Brandin aren't comming this year. So I guese I won't be meeting Jarome this year, but maybe next year. I am still having lots of pain in my jaw. I get to spend some time my dad on Sunday, and I get to see Ajay! Yahoo.
That's all the news for now.
Jenna

Thursday, July 22, 2004 4:01 PM CDT

Hello Everyone!
Today, I have to go to the clinic. Guese what? I have stiches that have been in my ear since May! They look like they are a little infected, and it hurts. My left leg is really bothering me as well, and it is really painful. We are having friends over tonight for super.
That's all for now.
Please keesp my friend Jonathan in your prayers. I know that he would love people to visit his site, and please sign his guestbook. He is one of my hero's!
www.caringbridge.org/nc/jonathan
MSN Messanger: hockeys_life@hotmail.com
Email: hockeykid@telus.net

Wednesday, July 21, 2004 10:44 PM CDT

Today My health is still the same as yesterday. My left jaw I could barley open at all today. It felt like I had to pry it open. I will be emailing my doctor in NC. to let him know what my jaw is doing. So I will see what he has to say about it. My sinuses are really bugging me today. I still can't stop coughing! There is still alot of preasure in my right jaw.
Today Tina, Bryce, Mac, and I, went to FunFactor. We then went Bowling, and then we got a slush.
That's all for today.
MSN Messanger: hockeys_life@hotmail.com
Email: hockeykid@telus.net

Tuesday, July 20, 2004 4:59 PM CDT

Hello friends,
Today my health is not the greatest. My head is killing me and so is my neck. Underneath where my neck, by my jaw, is extremly sore and painful. we are going to friends for super, but I can't go swimming this time unfortanatly. At least I get to go out for super that is the most important thing. I am feeling very awful today, and I hate feeling this way. Anyways that's all for now.
I will write more another day.
Here is my MSN Messanger ID: hockeys_life@hotmail.com
Email: hockeykid@telus.net
Please keep my buddy Jonathan in your prayers. I am sure he would love it for others to visit him, and please remember to sign his book.
www.caringbridge.org/nc/jonathan

Monday, July 19, 2004 6:28 PM CDT

Hello This weekend was a pretty Busy weekend for me. On Friday, We went to some friends house for super. I had my first steak- Moose Meat! It was pretty soft, and very good. I went swimming in their pool. I can't swim all that well, but I did manage to swim to the deep end and back to the sallow end. I had a piece of Chocolate Banana bread, and that was good.

On Saturday, we went Walmart, and I bought some candy for myself. A whole bag of Jube Jubes. Then we went out for super at Joey's Only, it is a Seafood restaraunt. Then we stopped at a video. Mac, and Bryce got a video game, and we rented a movie for all of us to watch.

On Sunday my cousin was in town, with her boyfriend. So they picked my grandma up, and then me up, and we went to Denny's for lunch. I had the kids meal and I ate all of my fries with gravey, and a whole big cheeseburger. My jaw is more painful today though. Then for super we had apetizers.

My health today is still the same. Except I have been coughing for five days straight and we are not sure why. my throat doese hurt a little today. I know that I don't have a cold. It is annoying coughing so much thought! I went to get the juice jug out of the fridge, and guese what, the butter container, smacked me right in the lip. It cut my lip open inside a little, it hurt too! I haven't been feeling well today, alot of nausea and feeling yucky. My head is really bothering me. Well that is all for now.
Godbless
Jenna

Friday, July 16, 2004 3:05 PM CDT

Hello Everyone:
I hope that everyone will have a great weekend. I will start this update with my health update. Yesterday, we went to Cosco and had super there. I orderd chicken fingers and fries, which I can normally eat. However for some reason, lastnight I could not chew. My jaw hurt so bad it was really hard to move it. It really fruatrates me, because these little setbacks always slow my progress down. It still seems swallen today, and there is still numbness, and severe preasure on both sides. I am really hopping that there isn't anything wrong with it. I am just wondering why it is taking so slow. I couldn't chew at all yesterday, and today seems to be the same. There is a lot of stiffness in the jaw as well. I seem to be having some difficulty with my ear again! It is the left ear again, the same one the gauze was in. It is just really painfull inside, and it seems like the stiches from the operation in May, are still in it. They should have fallen out, but they haven't yet. The bone on both sides of the jaw joint is very painful and tender, the left side hurts more then the right, and I have alot more stiffness in my neck on the left side. My right knee joint is acting up today and it is hard to put pressure and walk on it.

Yesterday, after Tina got off work, I went to Coopers with her, and I got to pick out some corn chips for myself to suck on, and try to chew. Then we watched tv, and when Clayton came home we went to Cosco. We had super there, Clayton, and Tina, got some Mountain Bikes, Tina got some new shoes, and Bryce bought an XBox game for Mac, and we got a little bit of groceries. Then we came home and Clayton, Tina, and I watched a movie. Tonight we are going to some friends house, and Bryce, Mac, and I get to swim in their pool! It is very very hot out today.
Well that's all for now.
Godbless to all of my friends, family, and all those who check my website.
If Anyone uses MSN Messsanger feel free to add me on your list. hockeys_life@hotmail.com
My email address is: hockeykid@telus.net
Not hard to tell I like hockey! hee hee.
You are all in my thoughts and prayers.
Jenna

Thursday, July 15, 2004 3:41 PM CDT

Hello Everyone!
Well my week is going pretty good, except for the pain like usuall. I am still getting along with the boys, Mac and I are close like always. He is deffinatly a sweetie! He is almost ten, and we spent the morning making cards and pictures for Bears Who Care kids. He loves doing stuff like that. I have been playing XBox and stuff like that. Of Course I can wait until the fourth of August when all the hockey players come to Kamloops.

As my health goese there isn't really an improvement. I have been in severe pain 24/7 still, because my jaw is puffed up as a balloon on the right side. The bone on the left has really been bugging me lately, and today I have had headaches since I woke up. I do not like having this much preasure in my jaw, cause I don't feel good when I have this much pain. That's why I love chatting with my hockey buddy's and why I like hockey so much, because it helps. Of course I love reaching out to others and I always find the good in things, when things can be difficult. I miss my mom lots, but I called her lastnight. She seems to be having fun and enjoying herself with my grandma.

My Buddy Brandin is trying his best to come here. He is going to try to come here the beginning of next week. I haven't met him in person yet, and I can't wait to meet him. I have talked with him on msn and stuff. He is Ajay's roomate in Norfolk. They have both signed with the Chicago BlackHawkes. Brandin's girlfriend lives here, so that is why he is comming. I haven't talk to Ajay yet so I haven't heard if Jarome Iginla is comming, but when he doese and if he doese, I will be meeting him. I have heard from one of my Blazer buddies yesterday and that was a nice surprise. I can't wait untill hockey season starts up again. There is a 75 percent chance that there may be a lock out season for the NHL, but I can at least still go to Blazer games.

Well that's all for now, GodBless,
Jenna

Monday, July 12, 2004 3:47 PM CDT

Hello Friends:

As my health goese, I am having problems swallowing still, and it sounds like I have a reflux disorder. My jaw has now puffed up big time on my right side, and it is now really swaollen. It is really really numb, and I can't feel a thing. All I can feel is a pinching feeling in my jaw. I have been getting severe jabbing pains on both sides. Now that my right side is swallen it feels all tight. I have been getting five headaches a day, which I dislike. My pain in my jaw has been 100 percent severe. I have been coughing lots as well, and I have had severe chest pains yesterday, but luckily it has gone away now. My ear has been bugging me, and it hurts a little in the inside. I have more mobility on my right side then I do on the left side for some reason. So there for I have been eating more on the right side, but I try to eat more on the left, but that is more difficult. I try not to baby the left side that much. On Saturday it was two months since my operation.

I have been doing my exercises and my floride for my teeth. I am now eating lots, even though I must admit, it is very very painful. Like my dad says no pain no gain. So far I am now eating, CheeseBurgers, ChickenWings, HotDogs In A Bun, SmokeyDogs In A Bun, PorkChops, Corn On The Cob, and more. I haven't been able to eat those things and more for five years, so that is a pretty big deal for me, to be able to eat all of those.



I hope that you all have a great week! I am now experienceing what it is like to have younger brothers, for three weeks. I am staying with my restspite family untill the end of July. My mom is gone to Trail to spend time with her mom, who is my grandma. My mom is comming back from Trail on the 1st of August. My dad is gone fishing to Lilloote, he is fishing for Salmon. We barely see him in the Summer, because it is his favourite thing to do. I am not sure if I get to meet Jarome Iginla yet, because we aren't sure if he is comming to Kamloops. He may not be, because there he is playing the team Canada game, and he may need to practice for them. But who knows he may still be comming, which I hope.

On Friday, we didn't do much. We stayed home, because Tina and Clayton were both working. I had a chicken pot pie for lunch. I played XBox, and PS2 with Mac. Then we watched tv.

Mac is the youngest and I enjoy spending time with him. He told his mom the other day that he is enjoying having me here for three weeks. Mac is nine, Bryce is 12, and Courtney just turned 16. Courtney is gone to Castlegar to babysit her cousin's for two weeks and she left on Sunday. Bryce is always bugging Mac, and driving all of us crazy including his mom and dad, when he is doing so.

On Saturday, Clayton had a ball tournament, so we spent all day at Mac Park. They had an inline compition, and tournament all day at the SkateBoard Park, so that is where Mac and I spent most of our time, when Clayton was playing ball. My friend Justin was at the tournament taking pictures on a video camera. So I got to talk with him for a few minutes. My friend Joey was there too, so I got to talk to him as well. He was in the tournament for some parts. Todd another friend of mine from school was in all of tournament. I graduated with Joey, Justin, and Todd. Todd talked with me the longest, and he gave me his email, because he wanted to see my website. They all had a half an hour break, and I told Todd that I enjoyed watching him skate. So he said, I will go put my skates on and show you some tricks. So he did, and he was awseome at it. He wanted to see my website, so he gave me his email address. We all watched a movie Saturday night, and had kentucky Fried Chicken for super.

On Sunday we watched tv, had lunch and then went out. we went to my house to pick up some stuff, and some playstation games. Then we went to Aberdeen Mall, and I bought a shirt for a friend, and a shirt for myself. We then went to the Superstore, and then back home. We had Smokey hotdogs for super. Clayton, Tina, and the boys went to church after super. I decided to stay home and half the house to myself.

Today Mac, Bryce and Bryce's friend Chris stayed home. We watched some tv. I played playstation with Mac and now I am on here. We may go out tonight after super, I am not sure what we are doing.
That's all for now, and I will update another day.

Friday, July 9, 2004 11:01 PM CDT

I am now in respite right now for three weeks, while my parents are gone on holidays. On Thursday my hockey buddy Ajay, who lives here in the Summer called me. He resigned last week with the Chicago BlackHawks and wanted to take me out for some icecream! I had lots of fun! Some of the icecream fell off my cone! So Ajay threw some of his away. We walked around Riverside Park and talked. His buddy Steve Gainy called him, and I got to say hi.

I have still been having problems with my swallowing. I have been having lots more pain then usual. Yesterday we went to Riverside Park for a birthday party. Today I played XBox with Mac, and tommorrow we will be at the park all day. My head is hurting so I will write more another day.
MSN Messanger: hockeys_life@hotmail.com
Email: hockeykid@telus.net
GodBless
Jenna

Monday, July 5, 2004 11:40 PM CDT

Hello
Today my mom and I went to the walk in clinic. We sat there for two hours and finally got to see the doctor. I have been having problems swalloing, and things get caught half way down my throat. I have fluid in my throat that isn't going anywhere because it has dryed up and is just sitting in my throat. So I have to use salin to help it. She said I may have another disorder called Reflux disease. My right jaw has swallen more and there is still a hundred percent pain. I have met a very special friend named Skyler. Please keep her in your prayers. Please keep my friend Jonathan in your prayers too.
www.caringbridge.org/nc/jonathan
I am pretty sore so this going ot be short.
Anyone who uses msn messanger, feel free to add me to your list.
hockeys_life@hotmail.com that is my msn messanger.
Or you can feel free to email me at:
hockeykid@telus.net

Friday, July 2, 2004 10:01 PM CDT

Happy Fourth Of July Everyone!
Here is my Weekend update from Thursday on.
Thursdays: Upadte:
My mom and I went to Art in the Park for Canada Day! I bought three necklace's, two t-shirts, and some soap. I had some sushi, and Tempura for lunch. We watched some entertainment, and then went home for super. Then my mom and I went back to the park for fire works, at ten thirty pm. It was very good fireworks, and I got to see my auntie, uncle, and my ten year old cousin and her little friend.

Thursday health:
I had a lot of pain, but it wasn't bad at all. I had some problems with my IC, and stuff, but that's about it. I had a little problems with nausea, but it wasn't bad. I have had great difficuly swalloing my food.

Friday's Update:
My Favourite cousin Jaimie from Edmonton Alberta was in town with his wife Angela, and adoreable daughter Jayde. My mom and I went to have lunch with them, and my cousin Shayla, Aunt Shelly and Uncle Mike. I was so happy to see Jaimie and this was the first time I met Jayde. As soon as Jayde saw me, she walked over to me, gave me a kiss and a big hug. Jayde is adopted into our big family, Jaimie and Angela, adopted her. Jayed will be three on Wed. Then when my mom and I went home, my friend Gila picked me up and we spent the afternoon with her sister Shawna, and Gila's newphew Isiah who is four and a half. We all went to the Mall, I bought a hockey poster, and I saw my friends Bryce and James at the mall. Then we went to Seven Eleven, then to Riverside Park, then we went to Gilia's house and played a game, and then they drove me home.

Friday's Health:
I haven't slept for three days in a row, because the pain is so bad. Lots of nausea, and I am pretty tired. I have been very very frustrated today with all the pain. I have had a great deal of problems breathing today as well, which scared me a bit, and I hyperventalated a little bit. I have severe sharp pains in my neck that I have never had before. I have been in tears alot, because of the pain, but my highlight of the day was seeing my cousin Jaimie, Angela, and Jayde.


Saturday:
I went to Walmart with my mom. I bought a couple of posters, and two games, and some other stuff. My mom and I went to Canadian Tire to look at some lawn chairs. My mom and I then went to Mr. Mike's for super.

Saturday's health update:
My pain level today was up to a very high percent. Lots of severe pain, and burning sensation in my jaw. I have had problems with some pain in my chest. My pain has gotten bad when I started to chewing. I have alot of burning pain in my neck.

Sunday: I went to Cooper's with mom. My dad came home from Fishing, and he caught nothing.

Sunday's Health:
I have lots of sever pain. My throught hurts only when I eat food. I have been having problems swalloing food and swalloing period.
That's all for now.
GodBless,
Jenna
Email Addy: hockeykid@telus.net
MSN Messanger:
hockeys_life@hotmail.com

Wednesday, June 30, 2004 2:31 PM CDT

It's my dad's birthday today!
HAPPY BIRTHDAY DAD! YOU ARE MY HERO! AND I LOVE YOU!
I am writting this update earlier in the day, then I usually do, so if I have more to say later on today, I will add it to this update. In my last update I wrote about a friend and his wife. Tom and Yvone, who are part of the fundraising team for me. Anyways Yvone called my dad this morning, to let us know how Tom is doing. Thankfully he doesen't have cancer, but there is a spot on his lung, which is causing him not to be able to breathe and have hicups. So now he just has to wait untill the boviac comes in, and then he has to go to Kellowna BC Canada for a bunch of Tests. Please continue to keep them in your prayers.I got to talk to Yvone on the phone for a couple minuets.

On Monday, my dad stopped over at my aunt and uncle's bar that they own to say hi to them. Unfortanatly I wasn't with him, so I couldn't say hi. My dad told them that I will always have this pain, which is true, and that I will always be on these meds. My Uncle said it wasn't fair, and even my cousin Mikey asked how I was doing. Mikey said that I am the toughest person he knows, and that it wasn't fair that I have to endure so much pain, but that I have an awesome attitude about it. Please pray for my grandpa, well step grandpa. My dad's sister, who is my Auntie Shelly, got married last July to this guy Mike who is now my Uncle, and Mikey is Mike's youngest, and he is also my step cousin. Mike's dad, is very very sick, in the hospital, in Sask. Canada. He isn't doing very well at all. My Uncles mom, my step grandma just recently past away from Cancer. They are both wonder full people.

Lastnight I wasn't able to sleep. It was too hot, and I was in so much pain. I finally got up at 2am, to take three gravel, and I even had trouble sleeping after I took them. Then I woke up at ten twenty five in the morning, because the phone rang. I couldn't go back to sleep, because the pain was still so bad, so I just got up.
We are going for super to our next door neighbours, who are from Tiwan, and the wife, Ruby is a wonderful cook! I love her chinease food, and now I can finaly enjoy it. I am feeling sick to my stomache, and I have severe pain today.

I am still feeling pretty frustrated and angry about having pain the rest of my life, and being on this awful medication. But I am not letting my anger get me down, and I am just accepting it, and keep fighting. It's not worth getting upset over it, cause it won't do me any good. It's not fair that I have to suffer in this pain all my life, and that I haven't had a pain free day yet, but life's not fair, so I just have to stay positive, keep smiling, and living life to the fullest. The pain is at a hundred percent, and if it was going to improve it would have already improve shortly after the operation and it is almost, two months after the operation and there is no improvement with the pain. We knew because of my illness that I will always have chronic pain once and while in all of my bone joints, but now I will have chronic, steady 24/7 pain in both of my jaw joints. Somedays are worse then others. Well that's all for now. If anyone would like talk to me or add me on their msn messanger or yahoo messanger, or would just like to email me, please feel free to do so. I love making new friends and meeting new people.
My Email: hockeykid@telus.net
MSN Messanger: hockeys_life@hotmail.com
Yahoo Messanger: jensrace_inlife@yahoo.ca
Please sign the guestbook if you haven't been here before, and even if you have and you want to. I love reading new entries, and hearing from new people too.
Godbless,
Jenna

Tuesday, June 29, 2004 9:48 PM CDT

Hello Friends,
It's been a few days since I signed last. On Friday, I went to a barbequ and I ate have of a hamburger, which I over did my jaw, by eating it. My jaw was very painful and very tough to eat stuff the past few days. On Saturday, I watched the NHL draft with my dad. My buddy Kris got drafted to the Flames, and the Blazers goaltender Devan Dubnyk got drafted to the Oilers. Then my mom and I went out to Cosco in the afternoon.

On Sunday, We just stayed home all day. My mom and I went to the Super Store after Super. I was in severe pain, and so I went to bed at nine o clock. That was uncommon for me to do that, as I don't do it often. Plus I slep untill 12:00noon on Monday. Then my mom, dad, and I went to vote. Then we got some news about a good friend of ours, who may have cancer, we are trying to find out more info on that. He was in the hospital all weekend, then he went home tommorrow, and now he was rushed back to the hospital this evening. Please keep our friends Tom and Yvone in your prayers. Tom and his wife, were both behind a fundraiser that the anavets did for me recently. I look up to Tom and his wife. I also look up to Jack and his wife, and Pepper and his wife.
Monday night we had corn on the cob, and chicken wings! I really loved it and enjoyed it. My mom and dad and I, went for a drive to Traunquile lake, but we ended up in Deadman's Creek, which is a Native reserve! So we had to drive all the way back in to Kamloops, and didn't get home untill one in the morning.

Today which is Tueseday, we stayed home. I am in severe pain, because I used mussles yesterday that I haven't used before. I had a Fillet a Fish for super tonight, and some french fries. My jaw has been burining alot in the joint. I was playfully wrestling with my dad for fun, but as usual I was the one that got hurt. I went to run away from him, and I smacked myself in the face, of our television cabnet. I smacked my left jaw joint, just close to the eye. It hurt but it is feeling better now.
Well that's all for tonight.
Also if you want to see what I look like when I had my jaw operation, be sure to look in my photo album! I look totally different, I bet you will have trouble reconizing me, ha ha!
Jenna

Thursday, June 24, 2004 11:21 PM CDT

Hello Friends,
Guese What? I ate my very first A & W Hamburger lastnight, and I actually chewed it. Althought is very painful now, because I was chewing so good. There is alot of preasure in my left jaw and unfortanatly for some reason right now it isn't working as it should so it there is great difficulty when I try to chew on my left side. My right side is working just great like it's supposed to. The pain is very severe right now and I am still very frustrated that my pain is not going to get any better then it is. The doctor in NC who did my operation, is one of the best around and he is pretty honest. You see because my pain hasn't improved after a month of having the operation, he says that my pain won't improve, and I will alaways have pain and need to take my meds. I am trying hard to think positive, and try to accept it. I am trying to smile, and keep positive throught this news and the pain, but it is so hard at times, especially right. I have been getting very sharp jabbing pains in the back of my head. I always knew that I would have chronic pain all my life, but this jaw pain has been the worse. I must admit somedays like to day, I got, so Frustrated that I just wanted to stop eating. I knew I couldn't and even thought it is really tough to eat cause of the pain, I know that this is something I can't give up on. I have been feeling abit down lately, and really tired, all of these medications are just wearing me out.

Here's something a little funny that happened the other day. You know how I haven't been able to hear, and that I was deaf in my left ear, well get this: My mom and I went to the doctor to get the wax cleaned out of my ear, because that is what we thought was causing it. Well it sure wasn't wax. My doctor thought he saw something different in my ear, so he got the treasers and guese what he pulled out of my ear? He pulled gauze of my ear, so for a whole month that is why I wasn't able to hear!

My knee's have been really really bugging me lately. I will need plastic knee surgery sometime, but we just hope that I can handle the knee pain and that my knee doesen't give out, before the jaw thing gets in control. I have crutches so I will probably be using them for a while. I went to the dentist yesterday and he is so pleased that I can open my mouth wider now.
Well that's all for now. Godbless you all! Thanks for the encouragment as I really need it right now.
Jenna

Monday, June 21, 2004 1:23 PM CDT

Hello Everyone,
Well I just got some disapointing news about my pain. My doctor in North Carolina, answered some of our questions that we emailed him, and he just emailed me back.
This is what he said about the pain.
Unfortanatly you have recarlitrant pain, years and years of pain that include joint muscle and nerve. The implants have provided decreased pain in only ` of patients. That means 40ave persostent pain. remember, you are still recovering from a pretty big surgery, so surgical pain increases your overall presurgical pain and that should go away in time. However, your pain will most likely continue and you will continue to need the medications you were on previously. I do hope that you will be able to chew and eat and have dental care provided despite the pain. That would be a success!

I am still getting used to what he said, but I have to say it is pretty hard. I mean we thought I could get off this medication, and not be in chronic pain in my jaw, for the rest of my life, and battle, but unfortanatly that isn't going to happen. So I guese I just have to get used to this pain, and accecpt it. I am having difficulty right now dealing with this news, but hopefully I will learn to accept it, and just get on with my life, and live it to the fullest just like always. It is hard to handle right now, but in time I am sure I will handle it and get used to it.

Last night was a very very bad night. I couldn't sleep, and I kept waking up, and in pain. My stomache hurt, and pretty bad, as well as my pain in my jaw. I kept waking up every hour. One time I woke up at six, and I remember waking up with tears rolling down my cheek because the pain was so bad. I even felt nauses as well and I still do. I am still in alot of pain, and feeling nauses.

On Saturady I had a pretty good day. I went shopping at Aberdeen Mall with my mom. I got two summer t-shirt and shorts, outfits- a turtle outfit, and a dolphin outfit. I got two pairs of boys Cargo pants, that are cut off shorts, a pair of girls pants. I got a pair of Summer pj's, a hockey t-shirt, and a Calgary Flames t-shirt, that even has Jarome Iginla's name and number on the back, and C for Captain on the front. I had to get a shirt with my hero's name on it, and I got the last youth large of Jarome's t-shirt! Wasn't I Lucky, hee hee! I also got a Chicken Soup for the Nascar Soul, and another chapter book, by my favourite author Lurlene McDaniel. I also got five pairs of socks. I got a basketball pair, dolphin pair, a soccer pair, and two hockey pair that say: Hockey, Just try and beat me on my Ice.

My dad went fishing for the Weekend, and he is comming back today. So I was unable to spend Fathers Day with him, but I did wish him a Happy Fathers day over the phone. Today when he gets back, I will be giving him his gift. Chicken Soup for the Fishermans Soul. He loves to fly fish, so I thought that would be a perfect gift for hi, I will tell him that you all wished him a Happy Fathers day, when he arrives home.

Please keep my mom, dad, and I in your prayers right now. My dad was pretty upset when he heard that I will always have pain, and need to be on my pain medication for ever. I am very upset myself, I mean we all thought the operation would end most of the pain, but unfortanatly it hasn't. It just seems like we are back to square one again as far as the pain, and medication goese. Any comments/ encouragement in my guestbok will help me at the moment. If anyone would like to email me, my address is on the page. If anyone would like to chat with me on msn, or Yahoo, I will put down my emails at the bottom. That's all for now, I hope you have a good week, and godbless.
My MSN Messanger: ID/Email is: hockeys_life@hotmail.com
Yahoo Messanger/Email: jensrace_inlife@yahoo.ca
Regular emails: hockeykid@telus.net
Jenna

Thursday, June 17, 2004 10:51 PM CDT

Hello Everyone!
Today has been a very tired and busy day. My dad and I just got back from Vancouver. We got to Vancouver on Monday. We stopped in Chilliwack, like we always do for gass. We have become great friends with the owners of the gas station and the people who work there. It was great to see them again. Then we went to Value Village, stopped for French Onion soup at Boston Pizza, then headed into Vancouver. When we got to Easter Seal House, I talked to all of my friends, who are the staff that work there. I got to talk to my friend Aaron, and visit with Jo and Katy, who were my LIT Counsler from last year. I got to look at the LIT book, and lots of pictures, to help me not stay bored.

On Tuesday in the morning before we went to our doctors appointment, I got to visit with Rick, Sheila, and everyone else. I couldn't sleep Monday night, and on Tueseday I was in so much pain, that I woke up crying. Our friends from Terrace, Keith and his mom Lynn arrived Tueseday. Keith has had 16 lazer surgeries on his eye, and on Friday he will have another one, which makes 17. He is only tweleve years old, and is so brave. After the day surgery, he has to lay down on his stomache for seven days. The only time that he can get out of bed is to eat, then he has to go back to his bed. Please keep him in your prayers.

We went and visited my doctor in Langley. He thought that the operation turned out great, and he was tickled pink with it. I do have a lot of nerve damage, but he said that it should come back. He said it has only been a month so it is too early to tell yet, if there is something wrong with it. He said I will have this pain for about 14 months. Uggh! This pain is worse then before the surgery, and it is so frustrating. Plus, the nausea is getting on my nerves, and that is from the medication. As far as my blood clot in my ear goese, it will go away by it's self. I guese, all I can do is fight. It is very frustrating for me, because the pain is so severe, and it is hard to handle now. But I have to fight as hard as I can to beat this. My doctor asked if I was getting out and doing stuff? I said not really because my meds are causing me to get nauses, and tired and stuff. He said then go off the meds, and I replyed I can't because I am in tons of pain. Then he is like oh right I understand.

After our appointment, we went to Willow Brook Mall, and when we went back to our car, it would not start.
My dad called BCAA and they said he left his head lights on, so they came, and started the car. Then we went back to Vancouver, and stopped at London Drugs for a perscription. Then we went back to Easter Seal House. My dad and I went out for super with Keith, and his mom Lynn. We went to The Neighbours Restaurant, it was called.
Well that's all for today.
Jenna

Monday, June 14, 2004 1:40 AM CDT

Hello Everyone,
Today has been a very busy day for me, and my mom. Tommorrow I am off to Vancovuer with my dad. We have to go to Langley, to see my follow up doctor, Dr. Blankstein. He is the one who refered us to Dr. Zunica, down in North Carolina. Now Dr. Blankstein has offered to do all the follow ups for free, isn't that nice of him! He is an oral suregon, meaning a dentist.

My mom and I went to physio at one o clock today. We saw a new physio therapist, and his name is Keith. He will be my physio for my jaw. My mom asked him about my lip, and his reply was that it is paralyzed. He said that it very well could be paralyzed from nerve damage and if that is the cause, then I will unlikely get use of it back. If it is just paralyzed by the swelling then I may get it back. I now need intense speech threapy as well because I am not talking like I used to, and people have diffculty understanding me, and I get pretty frustrated when people can't understand me, even my parents. My mom and I then went to the Dairy Queen after physio. I am not supposed to have chocolate, but my mom let me cheat, and told me that I could a chocolate Dipped cone. I really miss having those, and I ate the whole! We then went and stopped at the bank. We saw our friends Sylvia, and my friend Chelsey's mom, who both work there. Then we went to the Super Store, and I got a pair of pjama's, and a book.

Today, I am still feeling pretty rotten. My pain has completly worsen, and it is very hard to chew. I think I over did it chewing over the weekend. THat still doesen't stop me from trying chew though. No Pain, No Gain! I have been getting these horrible headaches, and I have one right now. I have also been getting these really sharp, and I mean sharp pain in my jaw joint. It feels like someone is trying to put a need through my jaw joint. Well that's all for tonight. I write more when I get back.
Jenna

Sunday, June 13, 2004 5:05 PM CDT

Hi everybody! This weekend I am at my favourite, and only respite family's house. This was the first time that I stayed two days! I had one awesome time here, despite problems with my pain, and two of my illness giving me problems. I arrived here on Friday, and Tina, did my nails. Then we watched a movie called, Welcome to Moose Port, and it was a pretty funny movie. On Saturday, I played game boys with Mac, I watched the boys play on their X Box, and I went on the computer, while the boys, Tina, and Courtney went to their friends house for an hour to help them weed their garden. When they came home we then went to Cosco, to get some groceries. For super we had a whole bunch of appitizers, and Clayton rented the movie Hangman's Cross. It is a suspence type movie, and it turned out better then anyone though.
This morning I had a pancake for breakfast. We went to church, and I fell asleep their, because of my meds. We came back home, I ate lunch and now I am here. My mom is picking me up at seven.

As for my Paralysis, it is alot harder then I thought it wold be. I am trying to move it as much as posible to move it as much as I can. The situation just seems to get harder, and harder. I just want to be able to use my lip, because it is a real pain not being able to eat properly, talk properly ,swallow properly, and hold stuff in. I am going to work hard so I can get everything working again, but who knows if I ever will have movement. For now I am trying to keep pretty.

Latley the pain, and symptoms are getting very very bad. Several severe pain, and lots of numbness in my neck. I have been suffering from the shakes, in other words i have been very shakey. I have been suffering from very severe Nausea as well. I think I over did it yesterday, because I chewed so much, because I have to. Today my right jaw joint has been burning pretty badly, and I have had severe sharp pain on both sides. The only good news, is that I am still eat whether it is painful or not.
Well that's all for now.
Jenna

Friday, June 11, 2004 7:49 PM CDT

The past two days have not been the best days. I haven't been feeling well at all, and the last two days I have been feeling pretty awful. Way too much pain, for me to handle, but no matter what I gotta fight it! I decided that I am going to be able to use my lip again someday. It is paralyzed, but with a alot of very very hard work, I am going to get the use of my lips back. If Christopher Reeves, and Rick Hansen can start walking and work hard on getting there, then I can over come my paralysis too. My buddy Blair is a parapelplegic and he is dertermined to walk one day. So if he can do it, then so can I! I never thougth that I would have to work on paralysis and work to get my use of something back. It is pretty frustrating right now, and it can be hard, but I can and I will do it.
Like my says: I think I can, I think I can! I have physio on Monday. I am going to stay at a friends place tonight, and I will update on Sunday when I come home.
Please keep me in your prayers. This paralysis news has been pretty hard and diffiult on me. I am determine that I will get use in my lip back!
Jenna

Thursday, June 10, 2004 0:51 AM CDT

Hello I am happy to say that I now have my joyfull spirit and positive attitude back. I mean I have always had it, but in the last week, I have been pretty frustrated with the pain. I am still pretty sick, and I mean I will always have pain even when it won't be in my jaw, and I will always have other serious operations,(hopefully they won't be as serious as my jaw was. challenges and medical needs, but I will never ever give up fighting, no matter how tough it gets in life. Every obstacle that I have came across I have always, came through it with flying colours, and I must say it isn't easy. I have come across many obstacles with my jaw, including my recent operation, there are obstacles that I am facing with my jaw even right now, but I must say if I want to beat this battle, and eventually beat this illness, I have to keep fighting as hard as I can, be patient, be positive, have faith, and belive! I can and I will eventually beat all of my obstacles, even if it will take years, I am always willing to fight another challenge. Of course this is the only life I have known a life with pain, and challenges, so of course I have began to accept it, and I love it, I love my life, and I wouldn't have it any other way!

I talked to my buddy Ajay the other night on the phone. To tell you the truth he has made a big impact on my life,a dn everytime I talk to him when I am frustrated, I am always happy afterwards. He has a very up beat personality, it is so amazing, he is always happy and always smiling! Of course everytime I tell Ajay, Jared, Luky, and Brandin that they inspire me, or that they are my hero's, I get this reply back: no Jenna, You are our hero's! Ajay is in the picture on the front page. Ajay said that he has some hockey buddys that he talked to them about me, and that I am going to meet them. I have always wanted to meet three of my hero's Marcus Naslund, Jarome Iginla, and Shane Doan, I have already met alot of my hearo's I wanted to meet already. This Summer two of my dreams may come true. If Jarome comes here I get to meet him. Shane Doan is already here, and is going to talk to him to see if he will be around this Summer and if it is possible for me to meet him. This is the hardest year ever, and alot of people especially my hockey buddies have helped me out.

With the fundraiser that our local Anavets had, well they are getting loads of checks being sent in every single day, by people in Kamloops. One of them is my old princaple at my elementary school when I was in grade three I believe. He talked to Jack, who started this fundraiser, and Mr. Gordan asked him who this fundraiser was for. When Mr. Gordan heard the story he was in complete tears, and he said I know her, I used to be her princepal,and is real sweetie, well I guese he donated a big check! So far as of yesterday they raised fiftyeight hundred dollars, and it isn't over untill July, and jack said that is unreal how many people come in and ask to donate.

The school that I did a talk to St. Annes Acadamy well the grade four class donated fifty dollars, and they also sent me a note in it as well. The whole class signed it. I ate lunch with the grade four clas when I was waiting for my other talk to start in another class. The Teacher, Mrs. Grace, and her students, were struck by my amazing character, courage and lovely personality when I ate lunch with their class a few months ago. They have been praying for me everyday since then, and they hope that my surgery was a huge sucess.

As for my update today:
My lip is deffinatly paralyzed, I can feel it, but it won't work. I can not use it all it, both the top lip and the bottom lip. It feels like it is completly dead. It is hard to hold juice or pop in. It is hard to even put food in my mouth. It is pretty frustrating that is not doing anything, and we are pretty sure that it is paralyzed. I have to learn how to accept it, and try to get around that fact. It feels like the muscles in the lip are completly dead. I can feel it on the outside, I just can't do anything with it! My ear is still really bugging me, and so is the pain and preasure on the left side. Also another challenge is that for some reason I am having trouble getting my food down. Sometimes I can't even swallow at all. Other times when I can swallow, some food I can get down and some food is still in my mouth. I am not sleeping much anymore, because of the pain. When I finally get to sleep, I wake up, and can't go back to sleep. It has to do alot with the pain, and I think it has to do alot with the pain patches, and heat outside. My patches make me very hot and very very sweaty.

One thing that I really want to mention and I forgot to was that I was told just before I went into the operating room, that I may never make it, and if they had to revive me they would. Of course because I was very very scared already, I was even more scared when they told me that. When they gave me the medication for me to settle down and make me sleepy, I fought it for about fifteen minutes, and I kept saying i didn't want to have the surgery. My dad had already got me calmed down before we were told that, then he had to really calm me down afterwards. The only way he got me to drink the stuff was that he said what if Jared or Ajay were here, what would they say? They would be very proud of you if you took it, and if you didn't take it Im sure they would be disapointed, because they know that you are a fighter, so just think of them when you take it. So I took it, and it was worth if becasue I beat the odds during the operation, and I am still here fighting! Everyday that I am still here, is a great day.
One message to Sherri, I got your email, and I will email you very soon. I just wanted to wait untill I had a little more stuff to tell you.
That's all for now, and I will update in a couple days or sooner, if I have lots to say. The other day I got a package in the mail from my aunt and Uncle in Ontario. They sent me to Hockey Trivia books, with games and puzzles and stuff in it, just what I like. i love activity books and stuff that I can do in the car and so on, even on our way to Vancouver and even in Vancouver. It helps keep mind off someting else for awhile.
Godbless you all, and remember please keep me and my special friends in your prayers.
Jenna

Monday, June 7, 2004 11:56 PM CDT

I just wanted to write a quick update today. The pain on my left side has completly gotten worse. My whole head hurts like crazy, and when I try to lay down, I am in so much pain. We think that it may be the blood clot in my ear or something. My parents both said that the pain shouldn't be this bad. My left ear is very painful today too. I feel very very weak, and I have had trouble with my left knee today too. I am still completly deaf in my left ear, and it seems to be getting worse. I am trying to find as much strength that I can to keep fighting. As for my appetite and my eating well it isn't going that great at the moment. I don't seem to have an appetite, and when I do, it takes me a while to get the food down because of the pain. My nausea has come back too, and so that is making me not want to eat much. Please keep me in your prayers.

Well Hockeys over for the season. The Tampa Bay Lightening beat out the Flames. It was a great series, and both teams worked very hard. Tampa Bay deserved the cup, and I am glad Brad Ritchards got the Heinsman trophy! As for Calgary, Iggy and the Flames did their best and I wish them all the luck next. I am really hoping that I can meet Iggy this Summer! I will always be a Flames fan, even if that means that they beat out the Canucks, ha! ha! I would have really liked to see Iggy, win the cup, but on the other hand, I was happy to see two former Kamloops Blazers hockey players get the cup and that was Brad Lukowich and Daryl Sydor. Jarome, and Robyn Regher on the Flames used to play for the Flames too. One of my Hero's and Hockey Hero's is Jarome, (Iggy) and Ajay is making my dream come true! I sure hope Jarome comes here this summer!
Congradulations Tampa Bay Lighting, and Brad Lukowich, for winning the cup!
That's all for now.

Sunday, June 6, 2004 0:30 AM CDT

Hi Everyone! Sorry that I haven't updated in a few days, but I haven't been feeling very well at all. Friday, I just stayed home, and watched tv. A friend of mine, who I haven't seen in a long time, came over to say hello, and we had a nice visit. She brought me two more stuffed animals to add to my collection. After she left, I played with my playstation for about an hour. After my mom came home from work, she orderd Pizza, and Chicken Wings, from Little Ceasers. I ate all the Chicken Wings that were on my plate! I couldn't believe that I actually really chewed Chicken Wings, for the first time after my operation. I didn't eat much of the Pizza though. I am not allowed to chew the actually Pizza, so my mom had to cut it up in small pieces just for me.

My mom and I, went to Walmart, and the Super Store. My dad and I watched the Flames game! It was an awesome game! Both teams are very well matched, and they both deserve to win. Tommorrow is the big night, because who ever wins tommorrow night, wins the cup! The game is in Tampa Bay, and the Flames have always played good away from home, so we never know.

Today, we just stayed home, and I just took it easy. I had poached egg on toast for lunch today. My grandma promised me that after my operation, and when I can eat a little, she will make me her famous Pumkin Pie's. Pumkin Pie's are my favourite, especially her Pumkin pie. So she called me today, and told me that is was making me a Pumkin pie. So when it was ready, my dad and I went to pick up my pie, and visit with my grandma for a few minte.
I was falling asleep at my grandma's house on her coach, while my dad and my grandma were talking. For super, my mom made homemade soup, and grilled cheese sandwiches. I love home made soup, it is my favourite.

As for my pain level today, it was pretty bad. Actually all weekend it has been bad. My jaw has been cracking alot on the left side. There is barely no pain on the right, but over a hundred percent in the left jaw.I have had very very sharp and painful headaches, all on the left today. We think it might because of the blood clot in my left ear, and that is why I am in so much pain, but we don't know for sure.
Well that's all for the update tonight.
Jenna

Thursday June 3, 2004 0:15 AM CDT

Hello well the last past three days have been good. I haven't really done much, except for Watching tv, taking my meds, and sleeping lots. I have not been able to sleep at night for some reason, due to the pain. I don't have to much to say as there isn't really any improvement yet. Except one good thing, which is the swelling is going down. The pain however, has gotten worse, and it is and can be very frustrating at times, but I handle it like I always do. Yesterday and today the pain has been pretty bad on both sides. My neck still seems a little stiff, but the pain is going down in my neck. I have been eating alot, but mostly I have just been eating on my right side. I am trying very hard to eat on my left, but I start get sharp pains in the head and majour headaches when I try to eat on my left side. I don't want it to get stiff so even if it is extremly painful when I chew, I am going to try as much as I can. I have an appointment to see Dr. Blankstein who is my follow up doctor in Vancouver BC. Canada. He agreed to do follow up visit's for free, after I had my operation. He is an oral surgeon and his office is located in Langley BC. Canada Which is part of Vancouver BC. Canada. Our first visit is June 15th and 16th. My ear is still very very sore, and it for some reason seems like it has gotten worse. My dad and I go to Vancouver on the fifteenth, and my appointment is on the sixteenth. I can't wait to see everyone at Easter Seal House! Tonight the Flames won! Yahoo! They just need to win one more! Go Flames Go! Go Iggy Go!
Please keep me in your prayers, and all of my other little friends who need prayer as well. Today and yesterday, I have felt very very rotten, and lots of nausea, and sick to my stomache. Today I did manage to play my playstation for an hour. It frustrates, me that I have no energery and I know it will take a long time, before Im better again, because it takes about a year for my bones to heal and completly recover after a very serious operation. I have never been one to sleep lots, and have no energery, but I do know that I have to take lots care, and take it easy so I can get better! This is and will be a very long road to recovery, but with all of the support, and all of these people who care about me, and are behind me a hudnred percent, I know that I will make it and I will beat this battle, and then I can work on the next! I am a Fighter, people believe in me, and I believe in myself! I can and I will do this!
Have a great Weekend! I will write more either on Friday or Saturday.

Monday, May 31, 2004 1:01 AM CDT

I will start this update by talking about my fundraiser on Saturday. They started the day out by having a Pancake breakfast, and then a golf tournamnet. I didn't go to the Pancake breakfast because it started at eight thirty, and I don't do well and cope well with the pain, when I get up very early in the morning. My mom, dad, and I went to the fudnraiser dinner that was held for me on Saturday night. It was awesome, and it felt like it was my special night. They had an awesome beef dinner, and I ate most of it, and I used my jaw muscles. It hurt to eat, but I still forced myself, because my doctor wants me to use my jaw mussels as much as possible, and I can't baby it, because then they will grow very stiff, and even harder to use. There were alot of people for the Fundraiser, All of the people there were adults, and seniors. I was the youngest there, but I still had fun, because it was my special night. I was in severe pain like I always am, but I wanted to go to show everyone what a fighter I am, and how much appreicate them doing this for me. I met lots of people, chated, and had some laughs. My Aunt, Uncle, my mom, dad, my grandma, our family friends Vern and Marian, and another friends of the family's, Jennette, Del, and Allison were there to support me as well. I got up infront of people and said a short thankyou speach. I enjoyed seeing our friends, Jack, and his wife, Tom, and his wife, and my special adutl friend Peper. Peper's wife Wanda is also a wonderful person too, but unfortanatly she had another event to attend to so she wasn't there. This really nice guy named Darryl who is around his thirties, and he just moved here to Kamloops from Edmonton Alberta. Despite just recently losing a friend who past away, Darryl got together with a group of friends in Alberta, and the raised a thousand dollars, just for me. Then my boccia group gave me five hudnred dollars, the lady Auxillory from the Anavets gave me a $100.00, and another couple donated a $100.00 out of their own pocket. In one whole day they raised 34 hundred dollars. Meaning the raised three thousand, four hundred dollars!. I was given a nice glass humming bird that came in a nice case from my new friend Cathy. I was given a nice poem from my Auntie, and guese what? She made it for me of course. It is on my page. She frame it and gave it to me, and it is being published in the states. I was also given some nice beautiful flowers from Tom, and his wife IYvone. Jack bought me one of thoughs magnet pins you can put on your hats and stuff, and it flashes. Darryl bought me one too, so now I have two of them. The one from Jack is a guitar, and Darryl bought me a boot one. My dad went and asked Tom how he can put it on my hat, and when myd ad came back to the table, he was wearingit! Yup that's right he was wearing it on his ear! He said Tom put it on his ear! Darryl bought my dad a guitar one as we were heading out the door, and told him to wear it on his ear!

On Sunday, I slept in untill three o clock. I was pretty tired, and I was in severe pain in my jaw. I just stayed home on Sunday and rested, like I have been doing. My mom doesen't like me going out for too long right now, incase of infection and stuff. Lastnight I went to sleep for about two hours, and woke up around five o clock. I went back to sleep, and woke up at six. Then I went back to sleep then woke up at 1o. Then I went to sleep again and woke up at two in the afternoon and just got up. I was in severe pain and couldn't sleep. My left jaw is getting worse when it comes to pain wise. My right side is a little painful but it is going down. There is pain in my right side but not as much as left. It isn't as frequent eiher, and when there is pain on the right side it can tend to be severe. The Left side is extremly severe, and worse then it was before my surgery. My left year is still pretty bad and I still can't hear out of it. We think my left jaw may be very apinful because of the blood clot in my left year be we have no idea if that's why it is so sore. I am going to my doctor in Langley for my first jaw check-up since the operation. My first appointment is June 16th. Tonight the Flames lost, and the Lightning won, but I am keeping my fingers crossed that the Flames win the next game. Well this is all for now, and I will write more another day. I am updating every secodn day now, that way I have a little more to write instead of just five sentences, like I sometiems too.
Jenna.

Friday, May 28, 2004 0:57 AM CDT

Today was an ok day, and it was also a frustrating day. It was a frustrating day today, because I felt more awful then yesterday. I am in very severe pain in my jaw, and I have some pain in my left ear. Also I have very sharp, and burning pain in my neck, because that is where the stiches were, and where they had to get in to operate. The left side hurts more. I still can't smile propally because my lip is numb, and because of the swelling. I can still smile, and I always do, but it looks wierd when I do, because my smile goes to the right side, instead of both sides. I got sick to mys tomache tonight, and I was in tears. I have some new pain which is close to my leg, and it is very painful. It hurts when I walk, sit, and breathe. I absolutly do not like feeling so awful, and I am sure no body does. I even have a burning feeling in both of my jaws, as well, but it is not as often or as bad as my neck. They put a titanium jaw in both of my jaws.

I was in the paper today, and on the front page of it. They also did a really nice story about me, and my trip to NC, and my operation. They did my story, because they wanted to advertise my fundraiser tommorrow. I would like to share with you some of the article, only the things my dad, and I say. I am not going to write the whole article out. "I'm glad to be home. I'm starting to eat solid food. It really hurts but the doctor says I have to strengthen my jaw. This is definitley the hardest operation that I have had. Extreme pain, even now in my neck, and jaw," Jenna said. Once the swellign goes down and jenna is able to eat solid food comfortably, she said she will know the operation was a success. Her goal is to eat corn on the cob and steak, her favourite meal. "Jenna has a very high pain tolerance. The doctors in North Carolina said that the medication she is on would have killed most people. She is an amazing girl," said her father, Ken Fowler. Jenna Suffers from Conradi Hunermann Syndrome, whcih means she had a poor distribution of calcium before she was born. For the past six years, her condition has grown steadily worse and she gradually lost lost the function of her jaw. It's been a tough grind. She's suffered from this jaw condition for years, just eating mush, "Ken said." Jenna said she owes a lot of her recovery to her parents, aunt and uncle, and the people of Kamloops. She would also like to thank AJay Bains, Brandin Cote, from the Norfolk Admirals, and Jarret Lukin, and Josh Garbutt, from the Kamloops Blazers. The family would also like ot thank the LA Kings for their $6,000 donation that will go toward future medical expenses. "My hockey friends play a big part in my recovery, and if it werent for them, I don't know where I would be," Jenna said.

Today my uncle Glen called me to see how things went with the operation. He wants me to call him next week, and let him know how I am doing. He lives in Calgary Alberta, with my Auntie Sue, and my cousins Cassie who is 18, Kaitlynn who is 13, and Bryce who is 12. My Auntie Shelly who lives here in Kamloops called me tonight as well. My Auntie Shelly and Mike are going to the fundraiser dinner tommorrow night, and she said she has a surprise for me, but she wouldn't tell me what it was of course. I have to wait until tommorrow to find out. My grandma is also going tommorw night, because I wanted her to go, so I asked my parents and they both said yes, so I picked up the phone and called my Grandma. She wants to go so we are picking her up.

This lady named Pat, who lives in a town house complex one block away came over for a very quick visit tonight, when she was out on her nightly, and sometimes daily walk. Pat suffers from Bi-polar and Manic depression. She is taking lots of medication for it, which really helps her but she doese suffer other challenges in other ways. For isntance, she has no friends to come an visit her, and talk to her, and just be her friend. She lost her dog JT, and since then I can tell that she feels very lonely, and misses JT. JT was Pats companion for many years, and Pat was always seen walking JT daily, and sometimes at night. Pat came to my house tonight to give me the news paper article for me, becaus she thought that I might want to send it to a family member or a friend. Before Pat left my house, I asked her if it was ok if I came to visit her sometimes. Right away her face lit up like a Christmas tree, and she said " Jenna, I would love that, that would be so wonderful. I asked her if she wanted me to call her or just come over. She told me to call her first, and we would make ann appointment. She loves painting, art, and is a great and wonderful artist. Her paintings are wonderful. As she was walking out the door, she looked at me and said " Jenna, you are my hero." I was so happy when she left, and I had a big smile on my face. I was not only happy because she said I was her hero, but I was happy, because I knew that I made her day, and that she really apreciated that, and she seemed very happy when she left. I love reaching out to people young and old, but to tell you the truth I never thought that I would be reaching out to an adult who is much older then I am. Now that I did, I am glad because Pat needs a great true and special friend, no matter what age. Well that's all for now. I am in severe pain so I am goign to sign off now for tonight.
Jenna

Thursday, May 27, 2004 11:35 PM CDT

Today I woke up, and I was in very severe pain, and I felt sick to my stomache. My jaw has become very swallen again on both sides. The pain is so severe that for the first time since my operation I became in tears. I can't lay down not even on a pillow, because the pain is worse when I lay down. It feels like there is so much more preasure in my jaw, and it feels like it goese to my head, when I am laying down. My lip still seems paralyzed, but it is too early to tell right now. My left ear is becoming hurt inside, and I am still completly deaf on my left side. We have been using the ear drops daily, but so far no improvement. I also have to take all my pain medication still, and some pink medication to fight off infection, so I don't get any infections. That medication is liquid, and it is very very good!

I didn't do much today, I just had a waffle for lunch, and some tea, and I took my pills. I watched my usual soaps, General Hospital, and One Life to Live. I then went over to say hello to my neighbour who is from Tiwan, and her and her husband are now Canadian Citizens. I love them both, and they are like family. She is an excellent cook, and she always brings us food, and she somtimes makes my favourite food, just for me. Tonight she made my favourite soup for all of us, my mom, dad, and I. We had some of it for supper, and it was WonTon Soup. It was so good, and I had some fish nuggets that my mom bought at the SuperStore. My dad, and I watched the Flames and Lightening game tonight. They played in Tampa Bay, and the Lightning won four to one. The Flames still have a chance to beat Tampa, and bring the Cup to Canada!
GO JAROME!!! GO!!! GO FLAMES GO!!!

The local Anavets Club here in Kamloops, are putting on a charity fundraiser for me all day on Saturday May 29th. It is to raise money for the cost of my recent operation in the states, and other medical reasons like my teeth operation. Most of this money raised from Saturday, will be used to pay of our trip in North Carolina. On Saturday, they are having a pancake breakfast for me. They are also having a golf tournament in the afternoon. They are having a supper at night with a silent auction, and a band. All the money raised from the dinner, golf tournament, and silent auction will be going towards my medicale fund, and trip to NC.
That's all for now.

Tuesday, May 25, 2004 11:30 PM CDT

Hello Everyone,
I just have to add: Go Flames Go! Jarome is #1! He Shoots...And He Scores! They won their first game against Tampa in Tampa!
Thanks for comming by to see how I am doing, and checking up on me. I love reading encouragements in my guestbook, and recieveing happy mail from BWC, and from my friends and family. Things are pretty tough right now, and encouragement always helps. I got a card from someone from BWC in the mail today, and my friend Carol sent me a card, and a few pictures of Jason Holland and one of Alexander Frolov who play on the Kings. I got three cards in the mail with some flower seeds in them, when I got home from NC, they were waiting for me on my bed.

My mom read lastnight in a recovery booklet my doctor gave us, and she relized while reading it, that I was only supposed to have liquid soups and stuff for the first week. Now it is the second week, so I am allowed to have stuff like chicken, pasta, waffles, and stuff like that. I am trying to chew a little bit, and next month I have to start my mouth exersises.

The swelling seems to have gone down abit today. Unfortanatly the pain is very very severe. Today the pain has gotten worse, on both sides of my jaw, but the pain is worse on the left side, then it is on the right. Even when I just put my hand or my mom puts my hand on both sides, without even putting any preasure on it, I cringe in pain. The Dilatin I am taking for the pain is giving me majour stomache pains. For the pain I am taking Dilatin, Fentinyl Patches, and Gabapentin. Then I am taking my other two meds for my bladder condition.

Tonight was my year end boccai dinner, and even though I felt awful I went. I made a commitment and even though everyone understands that I am sick, I didn't want to back out at the last minute. Everyone had pizza, and ribs, but I had Fetichine, and Garlic Bread.
Well That's all for the update tonight.

Sunday, May 23, 2004 2:30 AM CDT

Hello Everyone,
Sorry I haven't updated in a few days, but I have been very sick since we got home. My dad and I, flew home on Thursday. We flew on Air Canada, and we had a lot of problems with that airline. I don't think that we will be flying on Air Canada again. My dad and I, asked for assistance getting on and off the plane. We asked assistance for two reasons, the first reason is: I was using my crutches, and I couldn't walk that far, to the plane and then to the waiting area where we had to wait in the airport. The second reason was that we didn't know our way around the big airports. They even put me down as priorty, and we still got stuck, and got no help. When we got to Kamloops my suitcase arrived, everyone else's did including my dads, but not mine. The problem we had the most was in Toronto, and that is where my suitcase ended up to be. So it went on to Vancouver and it ended up in Kamloops on the next flight at 10:30, so my dad had to make a second trip to get my suitcase. When we got it back, it was all wrecked, and damaged. I will write more about what happend in another day, because I want to get my health update on here, and it is getting pretty late.

Now I will write about my health update. Since I have arrived home things have gotten worse, and we figure it is because I am opening mouth now. I am in very severe pain. I am suposed to be opening my mouth, as much as I can. So even though it is very painfull, I am trying very hard to eat and chew In the third week, my doctor wants me to be eating sandwiches. I have to chew soft stuff right now, like walfles for example. Stuff I haven't been able to be eating before. My jaws are still very swallen, the right side seems to be going down right now, but the left jaw seems to be getting worse for some reason. Since Thursday, I have had no voice. We are pretty sure that is from the tubes they stuck in my throat. My throat is getting a bit better, but my voice is sqeaky. I had a very high fever of 100 point three. There is a chance that I could be paralyzed. Right now I can't feel my lip at all, and I can't move it. I have to have intense threapy, because my bite is way off, and we need to work my mouth. The doctor in Langly who refered us to NC, told us that he will do the follow ups for free, and he will do follow ups for six months. I also want to add that my jaw has now started cracking on the left, and I keep hearing rubbing on the right. We think, and we are also hopping that it is just doing this because it is swallen, and that it will stop when the swelling is down. If it continues then we will go to my doctor. If it is something bad, we don't want to keep it too long with out mentioning something my doctor. So if the swelling doese go down, and there is no improvement then we will have to get it checked. I am pretty frustrated right now with all the pain, and I still have to be on all my medication. I can't go off them right now as I was hopping, and he gave two more medication. Something for Nausea, and Dilatin for the pain.
Thats all for now, and I will write another upadate again.
GO FLAMES GO!
Win Jarome Win!

Tuesday, May 18, 2004 12:11 AM CDT

Hello everyone!!! Guesse who this is? Yup, that's right it's me!! Jenna!! The hotel I am at let me right a quick update. I went to my doctor today and I got my wires, elastics, and stiches out! Now I have to start chewing a little bit at first then by the third week, I am supposed to try sandwiches and stuff. I am in severe pain now, because I am now opening my mouth more. I am still supposed to use my pain medication so I can't go off them right now. In a month I have to start jaw therapy. I have a very long road ahead, but if I made it this far I can make it all the way! I am strong willed, determined, and went I am battling there is no stopping me! I can't hear out of my left year at all, because I have a blood clot in it from the operation. The doctor can't get at it, so he gave us some drops to use, and if there is no improvement we have to get it checked when we get back home. Everything is good other than that, and I am still here fighting, and I am going to win this thing!

Tracey, The Flames are on fire big time! Go Flames Go! My friend AJay is very good friends with Jarome Iginla. Guese what, because I have faught so hard and I am still fighting Ajay wants to do something special for me. He knows that Jarome is my hero and that I really want to meet him! Yup, Ajay has promised me for sure that I am going to meet Jarome this Summer when he comes to Kamloops. He comes every year for the Mark Recchi Tournament and for the Blazers Alumini weekend. Jarome used to play for the Kamloops Blazers. Ajay always doese what he promises me, so he is going to arrange me to meet him. It is going to be awesome espeically if the Flames win the cup this Year! I will be so proud and honoured to meet Jarome, and Ajay really wants me to meet him too, because Ajay told my dad that Jarome will really like me just like they all do! I can't wait! Go Flames GO! Fly Jarome Fly!
I talked to my hockey buddy Jared yesterday. He went to Hawaii for a vacation. He goese there every year, and he loves it. He goese there and practices, and trains down there. Ryan Ansely, who used to be with the Blazers is friends with Jared. Jared, told him about me and my battles, and challenges I have fight and that I don't give up at all! Jared and ryan were in the air port, on their back to LA, so Jared can clean out his appartment. Jared asked me if I remebered or knew who Ryan Ansely was. I said yes, and he said that Ryan was with him. Jared said that Ryan wanted to say hi, so he put Ryan on the phone. That made my day!

Stacey, Steven, Rebecca, and Joshua Phelps, Thankyou so much for the card that was delivered right to my hotle room! I really appreciated it thankyou! Auntie Donna and Uncle Ken, and Grandma, Thankyou so much for the love and support you give me during this hard times and the other hard times I have gone through. Thanks for updating my page, praying for me, faxing me my gbook entries, and for all the other special things you all do for me. You will all be my hero's just like mom, dad, all of my other special relatives, and Jared and my hockey buds. I love you Auntie, Uncle, and Grandma! Godbless you all! Also thanks to everyone else for writing in my book as I love the encouragement and it is helping me getting through this frustrating and still painful time. Please continue to keep myself and all of my special friends on Caringbridge in your prayers.
This is all from me in NC. I am signing out now, and I hope you all have a great day, and god bless.
Thankyou again. Hugs, Kisses, and Happy Wishes!

Sunday, May 16, 2004 4:53 PM CDT

Hi. This is Jenna's mom, Lois. Jenna is now out of the hospital, but is still in North Carolina. Jenna sure appreciates caringbridge and all those who take the time to check out her website to see how she's doing. Jenna has run a high fever two times now and she can't hear anything from her left ear. She'll be discussing these issues with her doctor when she sees him on Tuesday morning. Jenna is very comfortable in her room at Homewood suites. It is a very nice place to stay. Jenna can't eat anything but fluid as her jaws are wired which makes it difficult as she doesn't have anything solid in her stomach when taking pain meds and this leads to nausea. I sure miss Jenna and wish I could be there for all the ups and downs. Her dad is taking good care of her though. As Jenna doesn't have access to a computer her Aunt Donna and Uncle Ken from Trail printed her guest book and faxed it to her so she could read all the nice comments from everyone. Jenna is a brave soul and needs to be with all her many challenges. Jenna tells me I need to update her site more often so I shall try! Bye for now.

Thursday, May 13, 2004 0:37 AM CDT

Wednesday, May 12, 2004

Hi! This is Auntie Donna with another update from Jenna’s mom, Lois.

Jenna sleeps a lot but walked around with her dad today for a couple of hours. Her face is very swollen, her right eye is shut and is black and blue. She has pins in her gums that are securing elastics and these will be taken out in a week when the stitches are removed.

She had more x-rays done today, I guess to make sure everything is where it should be. Lois said Jenna’s dad had not talked to the doctor since the surgery but hopes to speak with him tomorrow morning.

She has not had too much nausea because they are giving her drugs through a line in her head. The doctor is amazed that she has not pushed her morphine button at all. I’m not surprised. She is a pretty strong young lady.

She is being discharged from the hospital tomorrow and will be staying in the same luxurious suite in the Homewood Hotel that she was in before the surgery.

Bye for now,
“Auntie Donna”

Tuesday, May 11, 2004 0:30 AM CDT

Hi! I’m Jenna’s Auntie Donna. Jenna’s mother (my sister) asked me to make a journal entry for Jenna. Today, May 10, she had her jaw replacement surgery in North Carolina. Everything went exactly as planned. The surgery lasted for 7 hours and the doctor said he did not have the problems that he thought he might have. She is doing well. They are monitoring her closely as the next couple of days are very critical. Her jaw is wired shut and she is heavily sedated as they do not want these new jaws of hers to shift at all. A catheter was put in so she would not have to get up to go to the bathroom. She is also on very strong pain medication so she will not move as a result of severe pain.

The jaws that were made from her rib bones were badly decayed and she had a lot of scar tissue which explains why she was in such horrible pain.

The doctor said that she is a real trooper but all of us who know her already knew that.

Before her surgery she and her dad had a luxurious hotel suite and two meals provided every day. Her dad is still being treated royally. On Mother’s Day another hotel guest who had met Jenna a few days before gave her $100 US. When Jenna told her that she shouldn’t do that the woman replied that it was Mother’s Day (her day) and that’s what she wanted to do.

I will add new journal entries as Jenna’s mother gives me updated information.

Bye for now,
“Auntie Donna”

Wednesday, May 5, 2004 0:38 AM CDT

I just wanted to write a quick note before I leave tommorrow. I was feeling very nauses today. Our neighbours are from Tiwan and red means lucky. They gave a card, and inside it there was a fifty dollar bill! I gave my mom instructions on how to use my website so she can post my jaw operation updates and so on, on here. Hopefull she will be able to figure it out, so I can keep you all updated on how I am doing. My Auntie Donna called me to wish me good luck and to let me know that she was praying for me. The Flames won and they are off to play the Sharks, which I hope they beat. The Leafs have lost out, but hopefully the Flyers will beat Tampa. I know Mark Recchi personally so I am cheering for the Flyers. I am cheering for the Flyers and the Flames all the Way!
My doctor in NC has never done both jaw joints before, he has only one. This time he is operating on both joints. Please pray that this operation is successfull and that there are no major problems or complecations.
That's all for now untill I come back from NC which will be in about three weeks or something like that.
Jenna

Tuesday, May 4, 2004 11:59 PM CDT

Monday, May 3, 2004 11:54 PM CDT

Today things have been ok. I packed for North Carolina, and I went to my doctor. We went to Walmart and I bought Checkers for only three dollars, and a colouring book for the hospital. I am very very scared for it. I am full of surprises when it comes to operations. I get extremly ill after an operation too. I suffered from Hyplethernia from one operation I had. It is also a knew hospital that I have never been to before. All of majour operations there has always been at least one complication the doctor has ran into. I am in so much pain right now, and my head is just spinning. If anyone knows what the weather is like in North Carolina can you please let me know. We will be in the Chapel Hill, Durham and Rauliegh area.
That's all for now. Jenna.

Sunday May 2, 2004 0:18 AM CDT

Yesterday was a very busy day. My aunt and uncle had a fundraiser for me at their bar. The Fundraiser was all day, the North Kamloops Lions did the breakfast by donation. It was a good pancake breakfast too! I was not well all day, but I went! I kept throwing up, and running to the bathroom, somtimes I didn't make it there in time, but people didn't care,t hey understood that I am sick. It was great I got to see all my friends! Then they had super there by donation. My aunt and uncle did the supper, they had a couple of bingo's and an acution for a canucks banner too. My Uncle told me to come up and make a speech so I had to make one on the top of my head, but I did. After I said my speech, a guy came up and gave me hug, he then he gave me a hundred dollars! There was this group of young guys around my age, (in their 20's) They all bought tickets for the banner. One of them won the banner, and he then gave it to me! I thought that was awesome. My dad went over to the table with me, and thanked them.

I didn't have anyting prepared for my speech, so I had t think of something quick to say from the top of my head. I said that I have some hockey buddies that have supported me in anyway they can, and before they came along I had no friends and my family and I never had this much support. I never knew that I would have this many people supporting me and believing in me. One of my hockey buddies told me that if I think positive, beleive and smile, good things will happen. Now I know he is right. The light is now shinning in my life, and then I thanked everybody. They raised tweleve hundred dollars, and in one day I think that was pretty good! The annavets are still raising money for me.

My friend and hero Denis was there too. He is married and his wife is very nice, and they have two young kids. Denis just came last night to the bar and it was so awesome that I got ot see him. I told him he was my hero and stuff and about my operation i will be having. His whole face had tears, and he kept pretending to get mad at me cause i kept making him cry with things that I said. He said that from the first time I met him, I was an inspiration to him. There. was a band playing there, and he likes Trevor Linden also.
He said Jenna, that band playing are players, Trevor Linden is a player and you are a player! You are going to knock this operation! He said I have hope that this works out and I know you have hope.

I have a bunched mussle in my kneck, and it is killing me. The pain goese into my throat, and it is veyr uncomfortable. All the mussles in my neck are bunched up and tight. I wen to Walmart today with my mom. I bought two cd's. Doc Walker, and Three Doors Down. i love Doc. Walker thye are country and they are awesome!
Jenna

Friday April 30, 2004 1:02 AM CDT

I have been getting worse these couple of days. I have been getting more and more sick to my stomache lately. Everytime I eat I have been getting sick, and now often when I am not eating I get sick. I got sick lastnight in the middle of the night. I have also been feeling very very awful lately. My head is in severe pounding pain right now. My stomach is in killing pain also. We think their just may be something wrong with my stoamche, but we are going to wait to see if it may be the meds causing it. After my operation, I will then be off the all of the pain meds, if I can handle the pain, and if being off the meds aren't helping the vommitting, then we will have to get my stoamche check out. It always seems like I replace one problem after another. All I feel like doing these days is sleep and get sick. I hate not having any energey, but I am not about to give up! My fight in life is deffinatly not over, and I have a long road ahead but if I made it this far, then I know I can win and beat the rest!

Thursday was my last day volenteering at the pre-school for awhile untill I have recovered from my operation. I will miss everyone their, the teachers and the kids! There is This one little boy Brett who is four and a half and is one of my favourites. His mom is a kindergarten teacher, she explained to him about my operation and stuff. She told me that Brett was pretty upset to hear that I have to leave for awhile, but he feels happy that I am going to get my jaw fixed. When Brett, his mom, and his little brother Scott were walking out the door, Brett looks at his mom and says, Mom is her going to come back one day, I thought that was very cute! Those were his exact words.

Today My dad and his friend went to Merrit. He was gone all day, since early this morning. My mom and I went to my hair dressers, and I got my hair trimmed and cut to my shoulders, so that it is short for operation, and it doesent get in my face. I got sick all the way there and we forgot to bring my friend the ice cream bucket with me! We will remember it next tiem that is for sure!
My mom and I went and got some super to take home with us after my hair appointment. At around eight my mom went to look at plants ar Zellers. Around eight thiry my dad calls to say that he is on the Coqahala, and his truck started on fire! They both were out of the truck when it happend thank goodnes. They called the toe-truck to come and pick them up, and toyed the truck to our house.
What an intresting night it was. Well I am getting some very and pain right now so I am going to go for now.
Jenna

Wednesday, April 28, 2004 11:22 PM CDT

Today I wathced Princess Bride with my life skills worker at her house. We had some tea and popcorn, and talked after the movie was finnished. Then we went to London Drugs, because she needed to pick up some pictures. Then she drove me home. I turned on the tv. as soon as I got home, so I could watch the Leafs game.

I haven't been feeling well at all this evening. I started to fall asleep rigt before super, then my mom woke me up to eat. I wasn't interested in all about eating. I feel asleep with my plate on my lap, and my dad woke me up, cause my head almost went in my food. That has never happend to me before! Then I took a couple of bites, and felt like I was going to throw up, so my dad helped me to the bathroom, and I did get sick. My stomache is really killing me. I just tryed to have my egg for a snack, and I managed to finish it, but I just kept on getting sick.

I am sure glad that I have my wonderfull parents to help support me, and giving me hugs and stuff, in times like this. I often wonder what life without pain would be like, and if I will ever find out. All I know is that I will keep fighting and keep battling my challenges and pain that I have in my life. Tonight my dad had tears in his eyes because I was so sick. I know that he suffers because I suffer, and sometimes I ask why this has to happen, Why do I, and the people aroud me have to suffer? Why do all my special friends have to suffer? Then I relize that we were all given these challenges, and Battles, because god knows that we are Fighters and Battlers, and that we are strong enough to fight our battles, and to win! I know that I just love battles, and that I can win them!
We Believe, and we never Give up, we just keep on Believing, Fighting, and Winning our Battles!
That's al for tonight
Jenna

Tuesday, April 27, 2004 11:51 PM CDT

Today was an ok day. We now have to stay in Durham NC, which is fifteen minutes from Chaple Hill, But we have a kitchen in our hotel room. I have to go to the UNC Hospital of Chaple Hill, so we have a fifteen minute drive each morning but it isn't that bad.
Pre-school today was good, I had a good day, and my last day is Thursday. As for the pain, Things have been the same lately. My jaw has been really painfull, and I am still getting sick. I am really having a lot of Breathing problems lately and chest pain. My chest hurts, so everytime, I breathe my it hurts and it is really painful.
My hockey buddies have all emailed me and they have all supported me with kind and encouraging words for me when I have my operation. My dad will also be calling my hockey buddies to let them know how I am doing. Time sure goes fast, I can't believe that I am going next week! Soon I will be able to eat normal food. After my jaw is fixed then I can start battleing my other battles, and they all have to do with my health of course. I love winning and beating my battles, and I have a lot more to beat, but I can and will beat them! The Flames won tonight!!!!!! Yeah Hoo!!!!! I am cheering for all of the Canadian teams, but the only team that I have been really keeping an eye on is Toronto! I really want them to win this series, even if I do know Mark Recchi! Well that's all for now.
Jenna

Monday, April 26, 2004 11:09 PM CDT

Today I got a hold of Jared. I had a pretty good talk with him on the phone, and I told him all about my operation and stuff. He is happy that my jaws are finally going to be dealt with. He said once I get over this battle I can get over all the other battle and challenges that I have with my health, that I have to beat in the futer, after this is done. Jared is in the play-offs playing with the Portland Pirates, AHL. He will be on the Washington Capitals team, next year for sure, Yahoo!!!!!! I can't wait to finally watch my bestfriend play for the NHL, on tv! Jared has to go back to LA. and clean out his apartment after his hockey season is over. He has some stuff to send me when he gets back to LA. I got an email from one of my other hockey buddies today too. I was so happy to hear from him.

I have had a pretty painful, and teary eyed day. I have been in tears because of the pain, it is so bad today. My mom and I had super tonight on the patio. My dad went for a drive to Merrit tonight, with a friend, so it was just my mom and I. Well I hope to be well enough to go to pre-school tommorrow. That's all for now.
Jenna.

Sunday April 25, 2004 0:19 AM CDT

On Saturday I went to respite. I love it there, it is so much fun! I help paint Mac's book shelves, that his dad, Clayton made for him. I played Xbox with both Mac and Bryce, and I played with my gameboy sp. We all watched Cheeper By The Dozen, and it was so good, and Funny!!!! Then today, for breakfast we had Walfels with strawberry and whiped cream, and sausages. I went to church with them. I saw two of my friends from high- school, who both go to that church. I talked to Doug and Richard, who are identical twins. I even got to hold a little baby boy named Davd. Pastor Lyle, prayed for my operation, and healing. Then after we came back home to their house, we had, and then I played Xbox, with Mac, and his friend Jossiah.

Mac is nine years old, and he just adores me. A couple of weeks ago, They went to this home show at the Kay X Ay, and Coopers had a table set up there. This guy Dave who is the meat guy, handed Mac a hat, and Mac asked him to autograph it, so he did. After Mac said, Now I have a hat just like Jenna! Cause I have my Kings had autographed with all the players. Then Mac wasn't feeling well the other morning and he says, mom I feel sick, now I know how Jenna feels. Tina said that everything is Jenna.

My pain today is still the same as alaways, and so is the nausea. I have been geting new sharp and painful pain though that I have never had, so that takes time to get used to. Arm has been hurting me alot today, and I have no idea why. It is getting closer and closer until I have to go to Chaple Hill NC. Well that's all for now.
Jenna

Friday, April 23, 2004 11:26 PM CDT

Today was a good day. I got out a bit today. I went out to the Kamloops Christian School to talk about inclusion, what that means for me, and waht it could mean for each of the students. They seemed to really enjoy it, and I talked to the high-school group at one o clock. High-School here is grades 8 to 12. They were all very quiet so I can tell that my message got across to them. The high-school principal was very pleased by my talk, and he thought that the message got across to his students. Then I talked to the elementary grades, which is kindergarten to grade seven. I only talked to the grades four, five, six, and seven. I think they got part of the message, but I think some of it was a little over there heads. I basically geered my talk for the highschool kids, and so I was surprised when the Elementary principal asked me to talk to her kids. It is a Christian school so it is kindergarten to grade 12. They have three princepals. One for Elementary, One for High-school, and one that is the princepal of the whole school. I really enjoyed doing the talk though, because I love reaching out to others and making a positive difference.

My dad took my Grandma out shopping, while I was at the school. So after we went to take my grandma home, and I got to visit with her for a few minutes. Then after we were done at my Grandma's house, we stoped for a Screamer, I am addicted to those things! They are so good! I watched the hockey game tonight, and unfortanatly Montreal lost. Right now I am cheering for all the Canadian teams that are still in, then when they are out, I will then be cheering for one of the teams in the states.
I also ate all of my super tonight. I had a Fillet O Fish, and some Chicken Nugets from Mcdonalds.

The only thing is that everything I eat, I can't keep it down in my stomache. I Can't wait until the day comes that I will be able to keep it down. The pain is still very severe, and for some reason my whole right side is numb. I have seven bruises on my right leg. The bruises could be caused by my deication, we aren't sure, but they do hurt a bit. EveryDay fresh bruises start.
That's all for now.
Jenna

Thursday, April 22, 2004 11:48 PM CDT

Today was an ok day, even though again I was pretty sick. I can't wait for all of this to end. I got sick to my stomache again today. I have not been able to keep any food down. I have also had severe stomache pains, and lots and lots of preasure in my head. My IC was also acting up today as well. I felt like I was going to pass out. I barely at any of my super tonight, because I didn't have an appetite. I did eat some of my snack at Pre-school today though. I had Tuna with Crackers, and a Muffin. My mom thinks that it is either my pain causing me to be this sick, or my medication, and or maybe My IC condition. My doctor in NC thought that maybe I had a stomache ulcer and maybe that is why I am so sick, but mom, dad and I, don't think that I do.

Pre-school today was pretty good. I helped the kids wash their hands for snack time, and I ate snack with the kids. I also comforted the kids when they were feeling sad, or fall down or something like that. When I came home from pre-school today I just layed down and watched tv. The Leafs lost tonight against the Flyers. Well that's all for now.
Jenna

Wednesday, April 21, 2004 10:49 PM CDT

Today was an ok day. It was a little bit better than yesterday, but the pain was so severe. It was worse then yesterday so I just took it easy. I woke up at one in the after noon, and then I spent most of the day laying down on my bed and watching tv. My stomache was bothering more today than it has all this week. I am still feeling awfull and I wish that I din't have to feel this way so often. I barely ate much today at all.

Friends of ours had a new baby, her name is Amy. Amy is so beautiful. Her parents are philpeno, and she is a very very good baby. She was crying and as soon as she saw me, she stopped. I gave her this little bear that we got her, and she grabed on to it right away, and never cryed.
I may go to pre-school depending on how I am feeling. My mom came in my room at 7:20 this morning to get me up for pre-school. Only she forgot that I didn't need to go to pre-school today. When I told her that, she appoligized four times. I thought that was pretty funny. I only go to pre-school on Tues. Thursday and Fridays.
That's all for tonight's entry.
Jenna

Tueseday, April 20, 2004 1:13 AM CDT

Today my symptoms are worse, and I feel awfull. I can't seem to keep anything down in my stomache. Whenever I eat or drink fluids I end up getting sick. Everyday this seems to be getting worse and worse, even including my pain. I haven't been able to sleep for two nights because of my pain. Tonight my mom brought me home a Screamer and I couldn't even keep that down. I barely ate my super tonight and it was a soft Omlette, but I didn't have an appetite.

Tonight I just layed on the coach and watched the Leafs game, and I also now have a Leafs Jersey! I was so happy that they won tonight! My friend Josh messaged me on my msn tonight, and he told me to keep fighting and that he believes in me. Thankyou Tracey M. for the Gaurdian Angel Card. My dad saw it and he told me that I have to pack it in my suitcase, and he will put it in my hospital room. Well that's all for now, I am in lots of pain and Im tired.
Jenna
GO Leafs GO!!!
GO Francis GO!!!
GO Tucker Go!!!
GO Belfour Go!!!

Monday, April 19, 2004 0:50 AM CDT

Today was just one of those days that I was feeling rotten, health wise. I just stayed home all day today. I unloaded the dishwasher, and made my snack for tommorrow, even though I wasn't feeling well. I was in my room lying on my bed this afternoon. All of a sudden I had severe pain in my pain in my head, and jaw. I also have problems breathing again, caused by medication. I burst into tears, and my dad who was downstairs at the time, came running upstairs. He wanted to take me to the hospital, that was his first reaction, but I din't want to go. Number one reason is because there is nothing they can do for me, and number two, is because we probably would be there for a very long time. I got sick to my stomache at least eight times today, and I am not exagerating. That is my health update for today.

George's wife Pat, called us tonight to let us know about George's passing. We already knew of course, but I was gald I got to talk to her. It is very hard to believe that he isn't here with us. Pat, was more concerned about how I was doing, so my dad talked to her and told her what was going on. Pat told me that George thought the world of me, and that he and Pat love me dearly.

Tonight were game 7 for the Canadains, and Canucks. The Canadians played against Boston. They Canadains were down four to one, and they catched up to the Bruins, by working very hard to score goals, and win! The Canadians won the series against Boston. Go Saku Go!
The Canucks played at home tongiht against the Flames. They both played a very tight and good game. In over time though, Calgary scored. I can't wait untill the leafs game tommorrow night! Go Leafs Go!
That's all for now. I will write more tommorrow.
Jenna

Sunday April 18, 2004 1:57 AM CDT

Today was an ok day, and it was a stay at home day. My dad got some very sad news, which he delivered to my mom and I. Our friend George, passed away suddenly this morning, from a heart attack. I am really sad, because I was very close with George and his wife. I would get emails that george would write, asking how I was and telling me that Pat and George loved me, and are praying for me. If they never heard from me, for about a month, then we would get a phone call from , usually George who called to see how I was doing. He was a very caring and kind person, who loved fishing and spending time with his grandchildren. George passed away at 8:30am Ontario time, and 5:30am our time. I miss him already! My mom told me that George is still with me, that he is in my heart, and he will always be in my heart. my mom also told me that he will be watching down on me from Heaven! I have lost many friends young and old, but it still hurts when you lose someone you love and care about. Please keep George's wife Pat, and their children and grandchildren in your prayers.
We Miss You George, and we love you!

As far as my health goese today, I was in alot of pain. My mom put new fresh Fentynal patches on me, so I am now wearing four right now. My stomache has been really bothering me all weekend. I have also been having sharp pain in chest lately as well. I haven't gotten sick today though, so that was a nice treat not to get sick to my stomache. I sure wish that I had more of these days.
I watched the Leafs and Senators game, and the Sensators won, so there will be a game 7 on Tueseday, in Toronto. go Leafs Go!

Here is Satrday's Update:
I went and babysat my little friend Haley, who is five. She tryed to test my buttons a little bit, but over all she was pretty good. We played some board games, barbies, and she made a fort. We also watched Cat & The Hat, and Brother Bear. I didn't like Cat and The Hat much, but I loved Brother Bear! Cory, her step dad came home from work, and droped me off at home at six oclock, and I was there from one o clock. I also earned some spending money $25.00. Then I at super, and watched the Canucks game with my dad, which the Flames tyed it, so there is gonna be a game 7 tommorrown night in Vancouver.
Go Canucks go!
Well that's all for now.
Jenna

Friday, April 16, 2004 0:20 AM CDT

The last couple of Days have been ok. I have not been feeling like myself lately. I am back to feeling very sick to my stomache. I have also been having severe pain as always. I have been pretty tired of being sick, and I still am. No matter how tired I get though I am going to keep fighting! The harder the battle is the harder I am gonna fight. I am very very frustrated at the moment though. Even though I am frustrated I am still tryign to think positive. I just don't like getting sick about ten times a day or more. Everytime I eat something, or take my pills, or have majour pain, I get sick! I am getting very tired of these severe headaches! It seems like all I do this weekend is, sleep, get sick, and it goese around in circles. Today I have been in tears all day, because I hate feeling awful and rotten like this.
I have been having lots of pain in my stomache and we aren't sure where that may be comming from, the same as the nausea. My mom thinks it could be one of the meds I am taking for my IC. I think it may be the cause of my pain, and my dad thinks that it is the Fentinal Patches causing it. Almost a couple more weeks of this. It might not seem long to those who aren't going through the stuff that I am going through, but to me a couple weeks seem longer to me. I am just hopping that things go alright during surgery. I do get very very sick after majour operations, and I am scared, but I am sure that is a normal feeling.

Yesterday at pre-school this little boy Noah was experincing seperation anxiety. His mom is having a new baby soon. Noah's older brother is 6yrs old and Noah is 3yrs old. He is the youngest right now, but he knows that when the baby comes he won't be. This is really bothering him, and now when his mom drops him off at pre-school, he doesen't want her to leave. One of the teachers, carried him and tryed to commfort him, but he wouldn't calm down. I was sitting down on the steps outside and she put him right beside me, so he was in my arms, without being on my lap. The next thing i know he grabed on my hands, and he wouldn't let go. He then cuddled up to me, and I started singing to him and talking to him. He was with me for about an hour before calming down. Then one of the teachers brought out musical instrements to hopefully distract him. I rubbed his back for about ten minutes untill he finally clamed completly down, and started looking ofr an instrument. Both of the teachers thanked me, and they were so proud of me, and infact I was proud of myself, because I never thought I was capable of doing that, but now I know I am.

Today at pre-school it was alot less busy because there are only 13 kids in Mon. Wed. and Fridays class, but 15 kids in Tues. and Thursday's class. The twins Tristan and Devon came back, and they sure have grown. I helped out with Katelynn and Kodi. Even though I felt rotten I decided to still clean. I did the tables, dishes and the bathrooms, then I got ot go home.

My dad picked me up and took me home. My mom was trying to find a decent hotel for my dad and I stay to in when we go to NC. Our hotel sounds like it is going to be cool. There is a swimming pool, laundry, free local calling, and a shuttle bus, and more, but I forget. Then after my mom talked with the travel agent, we had to go to an apointment. Before the appointment my stoped at a store and got me a screamer, which I love! It is slush, and icecream, and it is so good! After the appointment we made a couple more stops and then came home.

I fell asleep off and on, and watched tv. I watched the hockey game, and the Leafs won! Tommorrow night will be the Canucks chance to win! I had Macdonalds for super, and my mom and dad had A&W, because I can't eat much at A&W. I love Fillet O Fish at MCdonalds, so that is what I had for super.

My bestfriend Jeneece called me tonight. She is ten and she has NF type 2. She heard that I have been very sick and so she wanted to call me. I haven't heard from her in a long time. She was pretty sad that I am ver sick, but she knows what it is like. We had a pretty good talk on the phone for about fifteen minutes. Jeneece is ten going on 13, she is very bright for her age. Jeneece told me that her teacher told her she had to write about two people either famous or not famous. She said she picked her two bestfriends. The friends she picked are Inga, who is an adult who has Chrones disease and lives in Toronto, and the other friend was me! That sure made me smile when I heard that. She wants to see me so bad that she was thinking about saving her money buying a plane ticket and flying all by herself to come and see me, then she relized that she couldn't. I just thought that was very cute!
That's all for tonight.
Jenna

Tueseday, April 13, 2004 1:06 AM CDT

Today was a good day, only everyday is basically a good day no matter how much pain I am in or how sick I am. I do have my awfull days though. The way I look at it though is, Everyday That I am Still Here And Fighting, Is A Great Day! No Matter How Awful Or Tough My Battle And Days May Be sometimes, it is still A Great Day! Pre-school today was good. The LA Kings, NHL Hockey Club, gave us the money, Yahoo!!!!!! They came through, I knew they would! They gave us six thousand for our trip to NC.

My pain is so severe right now. I have been sleeping alot at night and during the day, due to my meds, stomach sickness and pain. Things have been tough lately, but I am still keeping a positive attitude no matter how hard things are at the moment and I am a Fighter! My friends, family and others, believe that I can and I will win this battle! Most importantly I belive too!
I have so much support from the LA Kings and the players on the team, and I how much I have inspired them. I have had support from Trevor Linden and Markus Naslund, of the Vancovuer Canucks, and from Gerry Markus's friend.
I have had support from my local hockey team here, Kamloops Blazers, my buddy the captain on the team, and a couple of other players.
Mark Recchi of the Flyers, who I have met and had a picture with, really inspires me, cause he doese alot of charity stuff for the kids here in Kamloops, in the Summer.
My friends Ajay and Brandin, from the Norfolk Admirals (AHL) are another great supporters and hero's of mine.
They All Believe in Me.

My bestfriend Jared, who used to play for the LA Kings, but now the plays for the Washington Capitals (NHL). Jared, believes in me, he is my bestfriend, my hero, and my favourite hockey player. He is behind me a hundred percent. Jared always says that he is my biggest fan and friend. He told me once when I first met him that he is going to do everything he can to help me overcome this battle and my disease. So far he has, and he will always be my biggest Hero! I will always be his biggest fan and his friend.

God Belives in me too!!!!! I know that all the people I meet through this caringbridge site, and all my special friends and their families I have met online through this site, believe that I can beat this Battle.
I have met so many specail friends through this Caringbridge network, and what partly keeps me going is signing their books and encouraging them as well. Like others encourage me. Please keep all of my caringbridge friends, and all of the other kids and people who are battleing life threatening illnesses and diseases, in your prayers.
Well That's all I have to say for now, I will write more tommorrow.
Jenna

Sunday, April 11, 2004 0:50 AM CDT

Easter Sunday:
I didn't do much today, except basically sleep all evening, when I watched tv, I fell asleep. I have been doing that alot lately. I can't wait untill I am feeling better to watch tv without falling asleep, to go out and do stuff or play with my lego. I can't eat chocolate because of the diet that I am due to my IC. So for Easter I got tons of candy, and I mean tons! It will last me a long time, as I am very good at not eating candy all at once. I also got a glow and the dark Funshine CareBear and it is really soft. It is really small too, so I can take it with me to NC. when I go for my operation. My cousin called me today to wish me a Happy Easter! I got to talk to my cousin Isaac. Then I watched the Canucks game tonight with my dad. The Canucks won! Thats all for now.

Saturday, April 10, 2004 10:23 PM CDT

Well Today is one of those day that I am feeling pretty sick, and awful. I layed on my bed and watched tv. most of the time today. I went out to the Superstore with my mom, even though I shouldn't have gone out anywhere, because of the way I was feeling. We picked up some candy for my five year old cousin Isaac, and we also got him a hotwheels motorcycle. I hope to see him on Monday before his mom, this girl Erin who is living with them, and Isaac go home to Langly. Erin has a some special needs and developemental delays. She is very very high functioning, and extremly nice. When we got home from shopping, I layed down on my bed and I watched the Leafs game, and they won, 2 to nothing! Yahoo!!!!! I also got some Canuck pjamas, not hard to tell, I love my Canucks!

I fell asleep watching tv, and my mom came in and woke me up for super.
I have had a very majour headache today, and it seems to get worse instead of going way. I have severe pain in my jaw as well. I am also feeling very awful and sick to my stomache. I did try to eat my super as much as I could.
well that is all for now, I will write more tommorrow.

Thursday, April 8, 2004 2:02 AM CDT

Today I had a pretty good day. Considering my pain was sky high today. My lower jaw bone really really hurts. When I gently put my hand on it, without putting preasure on it, I cringe in pain it is so bad. I couldn't even open my mouth, eat or talk, without it irritating me. The bone is cracking severely now, and very frequent. My right leg was bothering me this afternoon, when I got home from pre-school. My IC condition was acting up today as well.

At pre-school we had an Easter Theme for the kids. They got to decorate the windows with washable felt, make Easter Hats, Paint hard boil eggs, and go for an Easter Egg Hunt. They also spent awhile outside, which they really enjoy. I had a lot of fun with the kids like always. At the end, I helped clean up, like I always do.

The Princaple at the Christian Shcool for hte highschool part called me. I am going to be speaking to the Elementry Kids, and the High Kids there.
I finally got a letter from the school board, saying that they have accepted my request to go into schools! Yahoo!!!!!!! I am so happy, I can't wait! As for hockey the Leafs lost to the Senators tonight. I can't wait untill tommorrows game against the Canucks.
Well That's all for now and I will write more tommorrow.

Wednesday, April 7, 2004 11:33 PM CDT

I don't have too much to say today, because not much has happened. I haven't been feeling well at all today, and I also have a cold too, so that doesen't help much. I am trying to get rid of this darn cold. My lower bone in my jaw has been really irritating me latley. We have t go down to Chapel Hill NC. On May 6th and my operation is on the tenth, we will be there about ten days, and a little more. It is such a beautiful Country, I love it, and Chaple Hill is so friendly! I am watching the Canucks game tonight, and we are winning the first game against the Flames!
Go Canucks Go!
That's all for now.
Jenna

Tuesday, April 6, 2004 11:58 PM CDT

Today was a good day. I had this killing pain in my neck and jaw today. I am also suffering from a bit of sinus, and a cough. I went and volenteered at pre-school today and that was a pretty good day. I slept today for about two hours, and I am still tired.

My cousin was in a play at school tonight, so we all went to watch it. It was the musical Oliver Twist, and it was so cute to watch all of the kids, but especially the other younger kids. My cousin is in grade four and she is nine, sometimes I think she is going on 12, by the way she acts at times. She was one of the Begger children in the play. It was a very good play, and we laughed at some parts, but especially when my cousin came on, she had a big smile on her face. There was alot of us there at once. There was me, my mom and dad, my cousin Linsday, my Aunty Debbie, my Auntie Marlene, my Auntie Sharon, and my nan. It is funny because when we went into my cousin Allison's class, she say's boy, I have a lot of relatives. She looks at my dad and she says, and he is the only crazy one.
On the way home, my dad stopped and got us some screamers.
That's all for now.
Jenna

Monday, April 5, 2004 0:09 AM CDT

Today was a pretty bad day as far as my health goese. My pain was very bad as usual, and my jaw bone was in extreme pain. I never got upset to my stomache today though. I did have more problems with breathing, and I felt extremly awful. I have been also feeling very dizzy latley too. I am also suffering from sinus the past couple of days too, so that doesen't help much either.

My dad and I went to the Kamloops Christian School today, because I had an apointment with the principal there. I am allowed to do my talk at the school on inclusion and tell them my story. The same as I did at St. Anne's. They not only want me to do the high school kids, but they also want me to do the elementary grades. Like grades five to seven. That will happen after Easter, so probably in two weeks. Then we went to the Salvation Army, and I found more Lego to clutter up my room. That's all for today, and I will write more tommorrow.

Sunday, April 4, 2004 11:35 PM CDT

Today was a pretty rough day, as far as pain and sickness goese. I had a really really tough time with breathing tonight. I couldn't breathe so my mom told me to put my head down between my legs. That seemed to help me alot and I could breathe a bit better after. I had severe pains in my head as well. My arm started to get a lot of sharp pains in it, and it was very hard to move it. My jaw has been cracking alot today for some reason. I felt very awful and terrible today as well.

I watched the Capitals and the Penguins game today. The Penguins won, but it was a pretty good game. Once Jared is on the Capitals they will win more games. I went to JerseyCity today and got a Leafs Hoody and a Canucks hat. My mom and I also went to Clares, and they had a big sale on. Then we went to the SuperStore to get groceries.

On Saturday at the Blazers open house, I had a lot of fun. Digger the Blazers Mascott was bugging my dad, for fun of course. Digger asked for a bottle of water, and a lady gave him one, then he takes off the lid and splats my dad in the face with some water. Digger put the lid tightly on the bottle, turned the bottle upside down, and then put on my the back of my dad's shirt. My dad thought it was open, because it was so cold, but it wasn't.
Then my dad went and got and ice cube and snuck up behind Digger and put it on the back of his jersey/costume he wears. Digger was signing some kids autographs, and he thought it was one of the kids waiting in line for an autograph, and the boy goese, it wasn't me. That was very funny to watch, I had a good time there on Saturday, even though I wasn't feeling well. Well that's all for tonight, I will write more tommorrow.
Jenna.

Saturday, April 3, 2004 0:10 AM CST

Today, I had a good day, but a very bad day for pain wise. I had so much pain today, that I even ran into my respite family today, and was asked to spend the night, but I turned them down, because I was in so much pain, and felt sick to my stomache. I rarley turn an offer down to go there, as I really like going. Their youngest boy is nine and he loves it when I stay there. I really love going there, all their kids accept me.

Today the Kamloops Blazers had their fan appreciation day. We got to take a whole tour of the arena. Each tour, had a Blazer leading it. Josh Garbutt, led our tour. I got to talk, and he is so nice. He knows all the players that I am friends with. Josh signed my Capitals t-shirt, and I got a picture with him. Also he gave me email address. He wants me to send him my website link, but also he said I can email him anytiem and he will reply.

My dad and I watched the Canucks and Oilers game tonight! The Canucks won over the Oilers, and my one of my fav. players and Buddy Marcus Naslund scored! The Canucks are now first divison!
Go Canucks Go!
The Leafs, beat the Ottowa Senators tonight, and a great score too! The Leafs are going to beat out the Senators in the play-offs! Ha Ha! I hope my cousin doesen't see this entry hee hee, Sorry Joel, but Im cheering for my Leafs! That's if the My Canucks don't beat them out!
Thats all for now, I will write more tommorrow.
Jenna

Friday, April 2, 2004 2:41 AM CST

Today, My pain level is really high. I am getting a really sharp pain in my jaw at the moment, it was like a jabbing pain. I ate a bit of super tonight, even though it was a real struggle. I got sick to my stomache a few times tonight. I managed to put a smile on my face. My IC is reallya cting up tonight.

At pre-school today, things were pretty good. I had to invene a couple times, with a couple of children. This little Matthew, is the only child and he had a really tough tiem sharing today. This little boy Ripley who i love to work with is four years old, and he is high functioning autistic. He is a great kid and I love spending time with him. He also has a lot of speech difficulties. There was this big stuffed bear, in the circle room, There was a big stuffed bear. Matthew was grabbing and pulling it, and Rippley wanted it too, I think. I gently put ripley on my lap and he started to cry. I finally got him settled down, and Miss Janice comes and brings out the bear giving eveyone a chance to give it a hug.

Today we got a call from Jack, the President of Anana Vets Club. We need money to go to NC, and that is what this is about. Jack went to this guy Pepper, and right away he replyed, yes of course. So now they will be doing fund raising for me and stuff.
My friend Heather came to visit me today. She lives in Crnabrook, but she came to Kamloops to visit. She gave em some socks and lip gloss for my birthday.
That's all for now. I will write more tommorrow.

Thursday, April 1, 2004 11:15 PM CST

I have been feeling very awfull lately and I am not doing very well at all. I used to be on this computer all the time and now I have only been comming on here for short periods at a time. I have been sleeping during the day more then usuall and my pain has gotten worse. At night that is a different story. I don't have any appeteite at all, and I am very frustrated, because I don't like being this sick. I am fighting as hard as I can right now. I am trying my hardest to smile, especially for my bestfriends, Jared and Jarret. I am also getting sick to my stomache as well.

I went to pre-school today, and even though I didn't feel up to it, I wanted to go. It was a real handfull today. The kids sure kept me on my feet. They had a paint wall outside and this little boy Noah who is three, sure had fun with it. He got paint in his hair, on his clothes, all over his hands and arms. So I must have spent five minutes washing his hands and arms. Then, at snack time, he wanted me to help open his snack. So as I was doing that, he took it upon himself to help open my juice, only he stuck the straw into the juice box, instead of the straw hole, and juice started to leak all over the table! Then as I was trying to clean it up, I had about five kids asking me to do stuff for them. It was a very interesting day. Tonight my friend Heather called and she is in town. She is comming over tomorow to see me, so that will be nice. Well that's all for now as I am getting pretty tired.
Jenna

Wednesday, March 31, 2004 11:54 PM CST

Today I feel the same as I have in the past couple of days. I have been very sick to my stomache and severe pain. Again I am very very pale. If I am well enough tommorrow I may go volenteer at pre-school tommorrow. My dad's friends Tom and Jack from the Anavet Club, came to visit us today. Jack asked us if he could put in a request to raise money for our exepences to NC, and we said of course. I fell asleep for two hours tonight before super and I still felt the same. Both The Wilds and Canucks won tonight! Yahoo!!!!!! The Canucks are number one in their divison tonight! Yipee! Go Naslund and Linden Go! I am now watching Nashville Stars and then I am going to bed early tonight.
That's all for now.
Jenna

Tueseday March 30, 2004 1:35 AM CST

Lastnight was a pretty bad night as far as pain, sleep and my IC condition goese. I kept waking up every hour because I had to go to the bathroom. It wouldn't let me stop going this time, so I spend about ten minutes, each time I had to go, which is very very frustration. I usely have the oppisite problem though, meaning that I usually have to go, but I can't. Also, this morning my mom woke me up, because I was supposed to go to pre-school to volenteer, but there was now way I would be going, when I am in this much pain. It is so frustrating when this happens, because I never like staying home on days that I have to go to the pre-school. My pain was very bad, and I felt and still feel pretty awful. I am gone down hill fast in the last week, as far as my health goese. I have been getting sick to my stomache everyday non stop, and more then once a day. Lastnight my left leg shook uncontrollaby and woudn't stop. Today and tonight, I kept sweating really bad and I was very dizzy. My parents and I are very sure that my bone in the lower part of my jaw, has collapsed or is broken. The last time my bone came out of the joint, I was in lots of pain, and I was getting. This time though, I am more sick then I was last time, and I am in a 100 percent pain, or a little more, and I wasn't in this much pain the last time. I am very very white, and pretty skinny now. I am barely eating at all now, so that could be why I am so sick. There is three reason's that could be causing me to be so sick, and that is: I am not eationg much, All the pain, or my pain medication. I was rarely on the computer much today, which means I am deffinatly not feeling well, because I am usually on this thing non stop without turning it off. I spent a little time on it during the day.

I watched General Hospital and Oprah. I got to talk to my buddy Brandin on his cell. He was on the bus, on his way to Philadelphia, because they have a game against them. They are three points behind the play-offs, so I hope that they make it. I basically layed down on my bed for a while tonight and watched tv. I was in tears tonight because of my stomach sickness and my pain. So my dad called me over to cuddle with him, and of course my dog Coco had to get in on the attention as well. My dad and I watched two really good movies on the Life Time Chanel, on the Satelight. That's all for now, and I will write more tommorrow.
Jenna

Monday, March 30, 2004 0:56 AM CST

Today was a very very rough day. I woke up about six times last night, due to my severe pain, and my bladder condition was acting up. I have been going to the bathroom about every five to ten minutes, and I am having great difficuly with the condition today. I am in severe pain in my jaw and my parents and I fear that the joint is broken or out of place. It is very painful more then it usually is. It really hurts to move my jaw, to talk, and to eat. My jaw is also very weak as well. I have been getting sick ot my stomache all day. I am very very weak, and I felt dizzie all day. I slept a little bit today, but that didn't help. I have been very hyper for some reason, and I have been in a daze. What I mean about being in a daze, is that I am not really there, it's like I am in outer space. Also I am having big trouble breathing. I am not going to my family docotr or the hospital here, because there is nothing they can do. Doctor Zuna at UNC, in North Carolina is the only one that can do something. I hope I can make it, because I am going down hill fast and I feel very very awful. I am trying hard to keep positive and to keep smiling, even though it is so tough.
Jenna

Sunday, March 28, 2004 9:29 PM CST

My health update for today, and yesterday. My pain has now gotten worse and it feels like the bone in the lower part of the jaw is broken. It so bad, that the pain is hard to handle, and I am getting sick all the time now. I have been feeling dizzie and I am extremly pale. I am not enjoying all this pain or being this sick, and I hope that April will go by fast. Out of all the pain I have had I must say that this pain is about the worse. My stomache has been painful, and I am having a little trouble with my IC which is another condition I have. My head has been full of sharp pains as well, but that bone in my jaw is causing me a lot of severe pain, frustration, and discomfort.


On Saturday my dad and I went to Vancouver and stayed over night at ESH. We were given Vancouver Giant tickets, because the Blazers were playing there. It was a play-off game, and unfortanatly we lost the series. So we are out of the play-offs, and the Blazers season is over. My buddy Luky (Jarret) scored a very nice goal. Acording to a Giants fan, who was cheering for the Blazers, Luky was the best player out there on our team. He said that if the other players were like him, they would have won the game, and I believe it. I got to say a very quick hello too him, before the game. In the third period we sat behind the players box. I got to go to right beside the blazers side, and I got to slap a few hands as they were going on the ice. I told them good luck, and I was so excited to see Luky again. Luky and I did knucles and he had a big smile on his face. We had the lead untill the third period, but then the Giants just came on extremly strong and in overtime they scored. I went over to tell Luky good job, just to encourage him and he was so upset that he wouldn't even look up, he just kept looking on the floor.
Well that's all for now and I will write more later.
Jenna

Friday, March 26, 2004 11:18 PM CST

Today, I recieved my birthday preasent from my birthday preasent from Jared. I never even knew I was getting anything and neither did my parents, he did all on his own. He is in Portland Main right now, The Washington Capitals. The Capitals didn't have our address so they sent it to the head guy of the Kamloops Blazers, our local Hockey club. He told my dad, that the Capitals called him and told him that Jared contacted them and asked them to send it to me. It was a team issue Capitals t-shirt. I also got twenty dollars from my aunt Diane today and I bought a Disney Chess set.

A new type of discomforting pain has developed in my lower jaw bone and the top of my neck. I have been having lots of headaches today as well. I have a medal SofaBunkBed, and I have the bottom sofa down, as the bottom bunk, and I smacked my head against it lastnight. That's all for now, i will write more on Sunday.

Thursday, March 25, 2004 0:04 AM CST

The majour pain an nausea are now back again! I wish that the worse pain and Nausea would have stayed away longer but no such luck. I can't wait untill after the operation. Of cousre I am very scared as I always am with an operation, and I will still have fourty percent pain, but hopefull it won't be as bad as it is now. I have a pretty high pain tolerece, but right now it is so bad. So I am pretty sure I can handle it after the operation. I haven't been feeling well at all this week, but today was bad. I am also back to being pale and thanks to my meds, I feel worse. They aren't helping much for the pain, so is think I will be put on Methadone soon, because my doctor is talking about it.

I went to pre-school today and we went to another pre-school close by with the kids. There was a little boy at the other pre-school who has a Ilama. All the kids were so excited to pet it and feed it. I recied a Care bear Calender and fourty dollars from my aunt, and 15 dollars from my grandma Fowler.
Well that's all for now. I will write more tommorrow.

Wednesday, March 24, 2004 0:02 AM CST

On Tuseday, I had a pretty good birthday. I got a carebear t-shirt and a strawberry shortcake t-shirt from my mom and dad, and I got a lego skate park, I have to build. I am also getting some money from my parents, and I got forty dollars from my grandma. I got a WHL t-shirt with all the hockey team logos in the WHL. I got a stuffed Ty Beanie Bunny, a seventeen magazine and a smile keychain from my friend Matia. I went to Kelly O Bryans for super with my mom and dad. I went to the Blazers game and we lost unfortanatly.

Today my pain is very very high, and I wasn't feeling very well at all. I layed down on my bed and watched tv. Then I talked on the computer with my friend Brandin, on msn. I went to the Blazers game tonight and we lost again. We really need to win on Saturday, if we don't then we are out of the play-offs. My buddy Luky scored a goal tonight and it was a great game! I met his girlfriend tonight, and she is very nice and pretty. She told me that he talks about me a lot. Well thats all for now, it is late and I need to send a friend a bday ecard.
I will write more tommorrow.

Monday, March 22, 2004 1:23 PM CST

Greetings Friends and Family,
I just got word today that my operation is on May 10th. I was in tears when my mom phoned my dad from work and told him. I know I really need this operation and that is why I agreed to it. However it is a very majour operation and I don't want it. But I am still going to have it, cause in the end it will help. I get extremly sick after majour operations, and I mean very sick. SO that is why it is scaring me so much. I know that I am a fighter and I have so many people who believe in me and who are praying for me, so I know that I will make it through. I also believe in myself as well which is very important so I know in the end I will be fine. I am just very scared as I have never had this kind of operation before.

Lastnight I couldn't sleep at all. I had to much pain in my jaw and I just had to much discommfort. I had my Fentinle Patches off for about six days. I was trying to see if I could go without them, but I couldn't. So unfortanatly I am back to feeling sick to my stomache and back to having stomache pains.
That's all for now. Jenna

Here are a couple of positive things I want to add: I have two friends who play for the Norfolk Admirals. Which is the Chicago BlackHawks farm team. My birhtday is tommorrow but I got their gift on Friday. Ajay is the Captain for the team and he is the only one that has a bobble head out. He gave me his booble head, and I have to Norfolk Program books. One of them has all the players profiles in it, and they all signed it by their name. I was also given a t-shirt from Ajay and Brandin, it is a Norfolk T-shirt. I want to share what they wrote on my shirt.
To Jenna:
All The Best! Keep Smiling!
Brandin #10

Jenna:
Best Wishes & Keep Battling!
Ajay #32

My Auntie Shelly called and talked to my dad on Sunday. She told him that she spent two hours on my main website, that has alot of links to other pages I made, and she even read my guestbook. She said by the time she was done she had tears in my eyse. She thought it awsome, that I reached out to so many people and inspire them. What really surprised her was that, my cousin Joel, even told his room mate and he signed it too. Joel is my Aunty Shelley's son. She talked to him the other night on the phone and she asked him why he didn't tell her that his room mate signed it. His reply was, I don't have to tell you, she's my Jenna! My Auntie told my dad that Joel thinks alot of me. Joel is my favourite cousin and he spends alot of time with me when he is on msn, or when he comes here to visit. I look up to Joel, and he is a class act, in my books!
Thanks Joel! Youre my Hero!
Well I just wanted to add those on here. I should get going for now. Please keep me in your prayers I really need them right now.
Jenna

Friday, March 19, 2004 11:35 PM CST

I am Back from NC. I came back on Thursday. Boy was that a long trip there and back. I was sure glad to be back home. On our way there we stopped in Seattle, then Chicago and Then Raliegh. On our trip down Mark Recchi's brother Matt was on our flight. Mark plays for the Philadelphia Flyers. On our way home we stopped in Washington then Seattle.

Yes, I am a deffinatly a canadate for the operaion. I will still be in pain but probabbly only have fourty percent of it. Dr. Zuna said that it won't take the pain away but I should only have forty percent of it. Also a risk of the surgery is that I may need a blood transplant. I probably won't but that is one of the risks. They will be operating on both jaw joints at the same time. I will be wearing braces for a month and then he exepts that I will be eating hambergurs and stuff after two months of the operation. This is a ver serious operation. They will be making a mold of my jaw before the operation so he knows exactly what he will be doing. It will take at least 6 to 7wks, to get the mold made, and he will let us know as as soon as possible. We are very pleased with my dr. and we know that I will be in better care in the states then I was here in Canada.

We stayed in a hotel Best Western in Chapel Hill. The hospital is University of North Carolina. It is a very big hospital with three hospital in one, including a Childrens Hospital. The hospital is right in Chapel Hill. The People down there were so friendly and talkative. You say that you are from Canada and people come right away and ask if you need help finding places. Unfortanatly Chapel Hill is a big Basketball town and not a hockey town. I do enjoy basketball too though and I bought a Lakers Shaquille Oneal jersey down there.

I am in so much pain now because the doctor played around with my jaw and so on. My birthday is on Tuesday. I have two friends who play for Norfolk Admirals, which is Chicago's farm team. They surprised me and gave me some stuff for my birthday. I got a shirt signed by both of them, one of them is the captain for the team and he is the only one with a bobble head out. He gave me one of his bobble heads, and I got two programs. I thought that it was the nicest thing for them to do especially when I just met one of them recently and I don't know him very well. Thankyou Ajay and Brandin!!!! The Kamloops Blazers just won against the Giants 2 to 1! Their first playoff game against the Vancouver Giants! My buddy Luky got the player of the year award this year, and he scored a goal tonight! Well that is all for now.

Monday, March 15, 2004 10:37 PM CST

Today was an ok day. My mom, dad and I spent all day getting stuff ready for NC. My dad and I fly out at six in the morning tommorrow. I got to call Jared today and wished him a happy birthday. He is in Portland Maine, conditioning his shoulder. He told me to be strong and wished me good luck. Jared said that there are so many people who care about me, that I never even thought would. Jared is one of the bestfriends I will ever have. I am in a lot of pain right now, and my head really hurts along with my jaw. Please keep my dad and I in your prayers, and please pray that I am a canadate for this operation because I really do need it.
I will update you all, when I come back from NC.
Jenna

Sunday, March 14, 2004 11:36 PM CST

Yesterday was pretty quiet day and today was too. I can tell that I am getting worse because I don't seem to have any energy to do anything or go anywhere. I have been pretty tired lately too. My nausea has still not gone away. My pain level is still pretty high. Time is going pretty fast. My dad and I are off to NC on Tueseday! I am kinda nervous because we are going to see a doctor and to see if Im a canadate for the operation. I am also excited in some way because I have never been there before.
Today my dad and I went to a Blazers game. I got a Blazers vest, because it was on sale for a really good price. Regular $59 and it was on for $20. The Blazers played an awesome game tonight. We Beat PrinceGeorge, eight to nothing!!!!! My Buddy Luky, got two assist's and his nineteenth goal this season. It was the last game in the regualr season, and we are now heading into the play-offs and we are thrid place. Tommorrow, March 15th, it is my bestfriend's, Jareds Bday. HAPPY BIRTHDAY JARED!!!!!!!!! All the best this year! I will always be your number one fan!
That's all I have to say, I will write again tommorrow.

Friday, March 12, 2004 11:17 PM CST

Today Pre-school went pretty well. We were outside with the kids for awhile. My little buddy Kio was there today so that was nice seeing him. I haven't seen him for awhile, he is three. I spent time with the kids and then I helped clean up.

Health wise, I am not doing very well at all. I have been extremly sick. I have been getting sick three or five times a day. My pain medication is making me extremly sick. Today I woke up with a really bad stomache ache and didn't get better all day. I also have extreme pain that I have never had before and it was very bad pain. I usually have very high pain tolerance, so my parents know that when I can't handle pain, it must be very bad. I have no energy anymore and I am not eating, as it is very painful to eat. I am also as white as a ghost and I am very teary eyed. So I am needing and wanting lots of hugs and cuddles, with my mom and dad. My mom and dad are also very furstrated and upset, because this has been going on way too long. We are off to NC. on Tuesday but all they will be doing this time are tests and a computer image of my jaw. We will have to wait at least one or two months after the first appointment. There is no way I can wait that long, so we are going to ask them to do it as soon as they can. I am still trying to fight and keep strong. It is just really frustrating right now, because I just feel really awfull. That is all for now and I will write again tomorrow.
Jenna

Thursday, March 11, 2004 11:39 PM CST

Today, I got up early again, and got already t go ot pre-school. I was in pain again so I decided to get up bright and early. The teacher Miss Janice, (as all the kids call her) asked me how I was this morning. I said, Im not feeling well, but I am here. By the time it was time for me to start cleaning up, I had bleached all the chairs, scrubed the table hard, because it had glitter mixed with glue on the table, and I did the bathroom. Janice told me that I got lots accomplished today and that I am making progress. Without asking what I can do, I go and find stuff that needs to be done.

I have been in lots of pain today and very tired. I watched tv. this afternoon and I fell asleep. Then later before super I fell asleep again. I did get sick just a little today. I am still feeling pretty crummy because of all the drugs and stuff. Hopefully all of this will be at an end soon. Alot of Hockey games on the tv. some good ones too. The Leafs lost their game to the Penguins. I like the leafs, but i also like the Penguins, so I was glad to see them win. The Flames won their game! Yahoo! That's all for now.

Wednesday, March 10, 2004 11:56 PM CST

Hello Today was another not so good day. I haven't felt well all day and I am still getting sick to my stomache, and the pain is still pretty bad. Today, I went to see my doctor who diagnosed me with my other Bladder condtion. He told me that he thinks the diet is slowly working and now he wants to put me back on a pill that I was on before. I went off it cause it stopped me from going totally and now he wants me back on it. He told me that if I have that problem again, to stop taking it. My dad and I will be off to NC on Tueseday. Hopefully they will be able to do something pretty quick.

As for Hockey, The Caps, lost against the Sabers tongiht 6 to nothing. I can't wait for my buddy Jared to play for them and he will shine!!!!! The Canucks are losing to the Wilds, 1-0 but that's ok. (Yes, Missey, I am slowly becomming a Wilds fan, as now I have to watch them all the time. The Blazers won tonight against Seatle, 2 to 1. I think the Kings one too, against the Cyotes, but Im not sure. Well That's all for now. I will write more tommorrow.

Tuesday, March 9, 2004 9:23 PM CST

Lastnight I woke up at four in the morning and couldn't go back to sleep because of the pain. So I woke up at 6:30 in the morning and I was still in a lot of pain, and so I stayed up. Pre-school went pretty good. Then my dad picked me up and we went to the doctors for my dads appointment. Then we went to Macdonalds for lunch, and then we went to my aunts bar. I got sick to my stomache a lot today, and I was in a lot of pain too.

When I was at the pre-school today, Jared called my dad. He was is so happy that he got traded to the Capitals! I was too, after I found out that he will be on the top line. He will just be going to the Portland Pirates for about two weeks then he will be playing in the play-offs for the Captials! I was so happy, he will for sure be in the NHL, by the end of the season, or by the play-offs. I am already getting a Kings jersy, which is on it's way, but I will also be getting a Capitals jersey now too!!! Jared said that he will be calling me before we got to North Carolina which is next Tueseday!!! My dad told Jared that I was deteriating fast, but he said she is sure a Fighter!!!! He told my dad that he will always be behind me a hundred percent, and I will always be behind him a hundred percent too. It has been a very frustrating week as I have been getting sick about four or five times a day. It is deffinatly not the flu.I get sick when I eat, but also when I take my pills, so it is either this pain or the pain medication. I will write more tommorrow.

Monday, March 8, 2004 6:21 PM CST

Today, I felt pretty sick to my stomache from the time I got up. I still feel very sick. My head is acheing with pain. My jaw very very pain today, and it is very hard to move it. Next Tuesday, we will be going to NC. Hopefully I will be a canadate for this operation. I can't much longer, the pain is getting way too bad for me to handle much more of it, even though I am very determined to keep fighting as hard as I can fight. My dad said that I look as white as a ghost today, meaning very pale. I did eat a little bit of super tonight, and I got sick to my stomache a little bit today.

Tonight I just heard some upsetting news in a way. My bestfriend Jared Aulin, who used to play for the Kings, just got traded to Washington Captials. I was a little upset and happy at the sametime. I was upset because the Kings are a good hockey club, and he liked it there, and I was happy because the Captials are a young hockey club,and he will do wonders for them. I am still a Kings though, because of all what they have done for me. The Capitals are now my fav. hockey team. They are a good and young hockey team. I spent about fifteen minutes convincing myself, that that was a good team for him to go to. Well that's all I have to say for now. It is get Late, and I am in a lot of pain.
Bye for now and I hope that everyone has a good rest of the week.

Sunday March 7, 2004 0:10 AM CST

Today I slept in untill two o clock. I watched some tv, and my dad made me pancakes, when I got up. Then we watched some of the Pheonix game when we ate super. I have had severe pain in my head. I fell asleep a little bit, before the game. The Blazers won tongiht three to two, and my buddy got an assist. I got sick a little bit after the game. I got a call from my Uncle Glen, who lives in calgary. My cousin Bryce is twelve and plays soccer. His team won a gold medal at tournament this weekend. My Uncle told me that my older cousin Cory was there visiting, and my uncle showed him a tape that the news here in Kamloops did about me. My Cousin had tears in his eyes I guese when he was watching it. I haven't seen Cory since I was eight or nine. My Uncle was pretty concerned that I am not doing well, and so are a lot of other people, but all the support I have helps keep me going. My buddy Ajay from Norfolk sent me an email today and apparently they are going into play-offs, that's cool!!!!!!!
Well that's all for now. I will write again tommorrow.

Saturday, March 6, 2004 1:01 AM CST

Today was an ok day. I am still not doing well but I am trying to keep my head up. I have a real sharp pain in my head right now. I have been pretty ill all day. I layed on my bed most of the day and watched tv. My friend Bryce came by to say hello for a half an hour, so that was a nice visit. I have no color in my face at all, and I am very very white. I have gotten sick to my stomache several times tonight. I at all of my super tonight too. I watched a hockey game on tv. with my dad and the Kings lost. I then watched another program on tv. with my dad. That's all for now and I will write another time.

Friday, March 5, 2004 11:26 PM CST

Today Was no better than yesterday. I did finally sleep lastnight though, but I did wake up in tons of pain. I had pancakes for lunch, and ate most of it. I had to go to a meeting with my mom, and I ended up falling asleep half way through it. I looked very sick, and pale, my mom said. I was in tears most of the day, because this is not a nice feeling, and I deffinatly don't like feeling like this. The pain is just unreal and it doesen't even help a lot of times when I take my pills. I tryed eating tonight and I had a very hard time, because the mussels in my jaw were just very weak, tight, and sore. I can't even open my mouth wide enough to get food in anymore, so now my mom is going to have puree my food, just so I can eat it. My jaw is also in a lock, so maybe once it comes out, it might be easier to open. I will write again tommorrow.

Thursday, March 4, 2004 0:35 AM CST

Today was another bad day and night. Last night I kept waking up every two hours, because the pain was so unbearable. Then when I woke up at six, I woke up my mom because I was crying, and she told me that I better stay home and not volenteer at pre-school today. Which I really wanted to go, but I knew that my mom was right. So I stayed home and tryed to go back to sleep for three hours but that didn't work, and I even took my pain meds. Then I got up ten in the morning and still felt awful. I chatted on the msn with my friend Brandin.

My mom came home from work around 12:15, to pick me up and took me to the hospital. I need to be at the hospital at 1:00 for some shots in my hand, for my carpal tunnel. It is supposed to help the pain and numbness. It was Steroid shots, and when the needle first went in both hands, it hurt like crazy, but then the first one numbed it, so the second one I didn't feel at all. Then about a fe min. ago I opened a can of apple juice, and just hurt my hand so now it is a littel painful.

I felt sick to my stomache all day, and I even took all the meds I was supposed to take. The pain is still pretty unbearable and they are talking about taking me off the pain patches and putting me on Methadone, after my first trip from NC. I am worried about going on Methadone because of more stomache sickness, which I may get. We were at the hospital from 1 untill 4 today. I also had an x-ray done, so we had to wait for that for an half an hour.

My friends and they are also friend with my dad, Anthony and Chrisse, called me tonight. Chrisse played in the show ER, and she got a check today. She wanted to give me five hundred dollars to help with our trip to NC. They are another Jared! When I called my dad tongiht, cause he is still in Vancouver, he just couldn't believe it. He was so very happy. So now we are getting money from Chrisse and Anthony, Jared and the Kings, and my aunt and uncel are raising money for me too.

Anthony is now a director and he is making a movie called the Clown and it will be made in Scottland. If I am doing better, he is going to be sending my dad and I to Scottland! So I can see the movie, and he said I might be able ot play a little part in it. I am Scottish so that would be so cool to go there! Anthony will be paying for everything, meals, airplane flights, and hotels.
Well that is all the news for today. I will write again tommorrow.

Wednesday, March 3, 2004 10:45 PM CST

Tonight around four thirty, I got a very sad phone call from my dad. My dad is in Vancouver at Easter Seal House, because he has an appointment at the cancer clinic. He phoned me and told me that our friend Stuart passed away this afternoon. His family took him off life support this morning and he past away at three o clock this afternoon. In August he ended up in the hospital with food poising that put him into the hospital. He was in a comma for a whole week. Stuart also had Cystic Fibrosis, and Diabeties. When he came out of his comma, he was then blind. I guese he just recently went back on life support. He lived in the hospital since August. He had a lung transplant two years ago. He was in his early thirties, and he worked at the desk, at Easter Seal House.

Stuart always put others first, if you needed help he would be there right away. He was even part of a local lions club in Vancouver and he loved helping others. I am really going to miss him, and so everyone else. I remember last year during the hockey play-offs, in Vancouver I just got out of the hospital and my dad, Stuart, and I were in the lounge watching the Canucks game. We didn't have any ice with us, and my jaw was really swallen. So trust Stuart, he went into to the freezer and got one for me. In August I just came out of the hospital for a jaw operation and my dad was going to take me to go see him. I wasn't feeling up to it though, but now I feel pretty bad, because I never got to go and see him and I wish I did. Stuart would have understand that I didn't feel well, because Stuart always understood others. He was good person, and now I have another angel friend looking down on me.

Lastnight I went to bed at ten thirty and I kept wakeing up every hour because of the pain. Then I slept untill one this afternoon. I felt tired all day and in lots of pain.
That's all for now, I will write again tommorrow.

Tuesday, March 2, 2004 10:57 PM CST

My health has gotten a lot worse, in the past two weeks, and it doesen't seem to be getting better. I am have severe constant pain in my jaw 24/7/ worse then before. The meds don't seem to be working. I haven't been eating much at all lately and I don't have much energy. My other condition is also giving me problems at the moment as well. I am having tons of stomache pain and nausea. I don't have much jaw movement anymore either, because it is to painful. I am trying to keep as positive as I possibly can through all of this. This is pretty stressful on both my parents to see me so sick like this.

It is great to have tons of support from everyone who checks up on me and signs my guestbook, from my family, my new friends that I have met online, and All the people from Bears Who Care, I love getting all the mail. Especially my pal, Becky Thanks for everyone, you are the greatest friend! My dad even told me that a whole new world has opened up for me, as far as getting mail, and that he loves seeing me smile this much, when I get mail. Also I have great support from Jared, Bryce, The Kings, My friends Ajay, Mattia, Brandin, Anthony and Chrisse. Thankyou To everyone who emails me, and check up on me and signs my guestbook. My Auntie Donna, Uncle Ken, My Grandma, and My cousins for cheking on my updates, and signing my book, I love you all, thanks for praying for me!
Well That's all for now. I am not feeling very well right now so i will write more tommorrow.

Monday, March 1, 2004 11:57 PM CST

Hello Today was an ok day. I just stayed home today. I talked on msn to My new hockey buddy Brandin Cote, and my friend Matia. All I had for lunch was two peices of bread and some dip. I did the laundry, and got my stuff ready for tommorrow. I ate a small super tongiht, but I got sick to my stomache. I have a lot pain in my jaw today. My hands aren't that numb. I have a lot of frustrastion today towards my illness and my pain. I wish I didn't have to suffer like this sometimes, but it could be worse then this, so i am trying to handle things the best way I do not like to get sick all the time, but lately it has been everyday. Well thats all for now and i will wirte tommorrow.

Sunday March 1, 2004 0:21 AM CST

This weekend was a pretty busy weekend, and not a very good one as far as my pain and health goese.
Friday, Jared called us, and we got some frustrating news and good news. The frustrating part is that we are supposed to be going to NC in about 2 wks in a half, or something like that, and we still haven't recieved any money. The reason for that is because the company that promised to donate six grand, decided not to for some reason. Jared was also very frustrated about that too. On a good note though, Jared approched the LA Kings, and one of the people my dad and I met when we were down there, happens to be head of the fundraising part. Right away she said that the whole team would do fundraising for me and Jared said they might even raise more then six thousand and if they do then we can just put towards some of my other expenses. This weekend each player of the team put there hand in this type of clay mold. At Saturday's game, and at a couple more games they will be selling them and all the money will go to my fund. They may be doing other fundraisers too, im not sure. We haven't gotten any money for the first trip yet, so we may have to use our own money for this trip and then the next trip we will probablly have lots of money. I feel very special that a whole NHL team is doing fundraising, so that I can get the medical treatments, that I need to down in NC. I haven't been feeling well all weekend, and things seem to be getting worse right now then better. My jaw cracked big time on Thursday and then the pain just seemed to get worse. So Friday, I was in a lot of pain, and talking to Jared helped me a lot. I even fell asleep just before we had to go to a Blazers game, which barely even happens. I also felt upset to my stomach as wel. The Blazers tyed the game on Friday against Red Deer. We probablly would have won, except the reffing was extremly bad.

Saturday, I had a lot of pain. I went for respite on Saturday at three o clock. I brought my sorry game, so I could play it with "my second Family". They treat me like I am their daughter and they take such good care of me when Im there, the same as my parents take good care of me. They have three kids, and they all accept me too. Courtaney is fifteen, Bryce is 12, and Mac is nine. Mac is a sweet, caring, kind, and cute nine year old. I brought my game boy's, and my games that the boys just loved to play with. Tina, who is the mom, Bryce, Mac, and I played Sorry twice. I had to call my mom to see if she could bring drive to Tina and Clayton's to put the pain patches on me, because she forgot to before we left. I was in tons of pain and it was pretty uncomfortable. After she put them on, I felt a bit better. Tina, Clayton, Bryce, Mac, and I went to DQ for a treat. Bryce and I both had a Blizard. After DQ, we went to the video store and rented a DVD. It was Dickie Roberts Child super star, (or something like that.) It was a pretty funny movie. It did have a lot of swearing in it though, which Tina and Clayton didn't know, because if they did the boys wouldn't have been able to watch it. It is rated PG 13, and Bryce said that is the states rateing, and that it is PG here in Canada, HA! HA! After the movie, Courtney came home a youth conference at their church. So I got to visit with her. I stayed up untill 12:30 and watched tv with Tina and Clayton. I barely ate anything lastnight for super.

Then today, Clayton, Courtney, and I stayed home from church and slept in. I had a kind of rough night lastnight, because of the pain. From the time I woke up today, I wasn't feeling well. I had a lot of jaw pain, stomache pain and Nausea. Really really bad, and I still do. Tina and Clayton had company over for lunch. We had a big lunch, and I did pretty good eating most of what was on my plate, but I was in so much pain, and feeling even more sick then before. I even had tears comming down my eyse, and when my came to pick me up, I couldn't stop crying, for some reason. That's all the news this weekend and I will write more tommorrow.
Jenna

Thursday, February 26, 2004 0:51 AM CST

Today was a good day. I went to pre-school in the morning and had a great time, like I always do. It was fun just playing with the kids, and having snack with them. I played with the boys in the block area. Then I just went around to other places and played with other kids.

After pre-school I walked to my mom's office and she drove me home. I checked my email ane of my hockey friends, Ajay emailed me. My friend's boyfriend is a team mate of Ajay's. I asked my friend if she could please give Ajay my email, so she did. The next thing I know, today her boyfriend Brendin, emails me too, and added me to his msn. I am very excited because now I have Jared, Jarret, Ajay, Matia, and Bredin, who all beileve that I can beat this illness.

I did my floride today, and the pain in my jaw got worse, because it decided to crack on me again. I hate when it cracks, because that usually means that there is damage in it. My hands are very painful and are very numb, so now I have to get shots in them to help the pain in the mean time. Only I was told it would hurt and be uncomfortable, but I want it done anyways. I will have the shots done on March 4th, which is next week.
Well that's all the news for now.
Jenna

Wednesday, February 26, 2004 1:04 AM CST

Today has been an ok day. I spent the day just at home on my computer chatting to friends on msn. My friend Jared, Agreivated his shoulder, which he injured last last Summer at the Kings training camp. He was doing very well with his therapy and stuff and now he is not a loud ot skate or do his therapy or anything like that. So now he just has to take it day by day, and he may not be able to play by the end of this season. He hasn't had much luck this season. I am thinking positive thoughts for him though.

As for my health and pain tolerance well I am getting a bit frustrated, but I am still not giving up. I have a long ways to go. I have lots of jaw pain, and frequent headaches. My left hand is very numb, and I can't feel anything. It's been like that for two weeks so far. My bladder condition is acting up. I have severe stomach pains when I lay down, or bend down and I feel nauses.
This is all for now.
Jenna

Tueseday, February 24, 2004 1:07 AM CST

Hello Today was another pretty good day at the pre-school, and at the school. It was my last day there, but I had a lot of fun. I really enjoyed myself there, the kids in all the grades, treat me with respect. I think that it was the best school to talk in, well better than my public high school I went to. I also got to spend the part of the day in my mom's office, which the only part of that was talking to some people that she works with.

I have been on and off my medication though. The pain medication makes me feel awful, and tired and stuff, so I didn;t take it when I went or before I went. I did take it in the morning before I went to pre-school, and later at super time, when I got home. My head is very painfull and so is my jaw. I can just stay home tommorrow, because I don't have anything to go to, except somewhere for an hour tommorrow night. I have to go now. I will write again tommorrow.

Tuesday, February 24, 2004 0:15 AM CST

Today was a pretty good day, except I can't stand that I have no feeling in my hands or fingers!!!!! After two years, I finally get a letter from Mario Lemuiex. I was so excited that he wrote me a letter. I wrote him two years ago, and I finally get a response from him, so that amd me very very happy!

Today I went and spoke to the grade eights this afternoon. It was a very very talkative class, and asked a lot of questions. Which I didn't mind, because I love to answer them. Couple of the kids have even emailed to let me know that I have changed their lives or impacted them in a positive way. When I am going through a though time right now with my health going down hill, I love to hear things like that. I sure makes me simle. I got a big card from the grade twelves! This girl who made the drawing on the front, drew me as a hockey player, with the Blazers sign on the shirt. She is one awesome artist! All the grade twelves wrote little note for me in the cards. Alot of the kids said that they know i will beat this disease and I am their hero! That really amde me smile. Well I have one class to talk to tommorrow. I have met some nice and awesome friends there too!

I was in some pain today, tommorrow is going to be a very busy day, so I may be in lots more pain. My jaw has been in pain, but today I could handle it. I am getting very frustrated with my hands and fingures being number. Because it is very hard to do things with them, and type on the computer. I watched the Kings play the Predators tonight and they won! A shut out, 3 nothing! Go Kings Go! Well that's all for now. I will update tommorrow.

Saturday,February 21, 2004 1:13 AM CST

What A night lastnight, and what a painful day, today was. Lastnight before I went to bed, I used my nose spray that helps with my sinus problem. I accidently poked it against my nose when I used it and I had a bleeding nose. In the middle of the night, (I believe was four o clock,) I fell off my bed on to the floor, and I hit my head extremly hard, that woke me up. I got up and put an ice pack on it. I then woke up every hour, for some reason.
Also all day today, my hands and fingers were all numb, and painful.

This morning my head and jaw were both extremly painful. I just stayed home, and went on the computer and watched tv. I also did some of the wash for my mom. Then tonight I watched the LA Kings play against the Columbus Blue Jackets. They won four to three, and the Blazers won their game tonight. The Blazers Played PrinceGeorge lastnight, in PrinceGeorge. The Blazers lost night to PG, and the score was 6 to three. Tonight the Blazers played again, in PG, against PG. The Blazers won, five to one.
Well that's all for tonight, I will write again tommorrow.

Friday, February 20, 2004 0:18 AM CST

I went to St. Anne's again to talk to one more grade Eleven class. I was asked to come back on Monday and Tueseday afternoon to talk to the grade eight's. I enjoyed talking again today. I love inspiraing people, and making a positive difference in my community. I brought my LA pictures and they all enjoyed looking at them I think. I brought my LA hat again, and I read Jared's message that he left me. Then one student asked if he could look at my hat. So he picked the hat up and looked at the signatures on it. They even clapped for me twice.

My mom picked me up from the school and took me home. From the time I got up this morning I have been feeling rotten. But I went to the school anyways, pain or no pain. I came home, and had lunch. I did the laundry, and emptied the dish washer. Then I watched a couple of my tv. programs. I got two cards from one of my friends, and that cheered me up.

My headache and pain got worse, and it still hasn't gone away. I also had nausea all day and I still have it. I layed down on my bed and watched Finding Nemo. I fell asleep while I was watching it, and slept for a half hour, then I woke up for a couple minutes, and went back to sleep for an hour. I am still tired so I won't have a problem going to sleep tonight. I usually don't fall asleep during the day, unless I am really ill or sick. I have been doing that lately so we know that things with my jaw situation is getting worse.

I was in tears tonight because I am in so much pain, and I feel so rotten. I got lots of cuddles from my mom though and I love cuddles. For super we had hamburger helper, and grean beans. I didn't eat much at all, infact I never really touched it. My jaw was very painful and it hurt like crazy when I opened. The Blazers lost in PG tonight. The score was six to three.
Well that's all for now. I will write again tommorrow

Thursday, February 19, 2004 11:54 PM CST

Today was a pretty good day, untill the pain started to kick in, after I got home from telling my story at the school. Again my speech went really well. I am glad that everyone there, thought my story was good and were inspired by it. I sure enjoyed my time there at the school this week. I am glad that I finally had a chance to tell my story. Tommorrow I will be speaking to one last grade 11 class.

Today the pain got pretty bad when I came home and today it wasn't only my jaw pain. My stomache decided to hurt a lot too. When my mom came home from work I was in tears because the pain was so bad. Sometimes I want the pain to go away but I know that right now it is impossible for it too. I didn't eat barely anything today because I didn't feel well. I am still in a lot of pain and I am trying hard to be brave.
That's all for now.

Wedensday, February 18, 2004 0:14 AM CST

Today I just stayed home, and watched tv. I also slept abit this afternoon because I have been in a great amount of pain. My jaw is very stiff today and I don't have a lot of movement in it. We had a Blazers game tonight. It helped me smile a little tonight when Luky scored a goal tonight and we won, five to three. My pain tonight was and still is really severe, and I have had another bad headache. I would like to talk more, but I have to go bed early tonight. I have another talk at the school, and this time I am doing the grade 11 classes. I will write more tommorrow.

Tueseday, February 17, 2004 0:39 AM CST

Today was another busy day, and I talked to the grade twelves today. I enjoyed talking to them more than I enjoyed talking to the grade ten in some ways. I talked to three classes in grade twelve today. I had everyone's attention in all three classes. I really truly beleived that they learned something from my speech, and alot of them thought it was very inspirational. The first class I went to didn't have any questions, but I know they still payed attention to the speech. The second class had a few questions for me, and we had a couple laughs, because of somethings I said that was a little funny. When I left the second class one boy said Thankyou, as I was walking out the door. Then the thrid class, there were lots and lots of questions. They thought it was inspirational, and they all waved to me and said bye to me as I left the class. As I was going out the door after my speeches were all done for the day, there was two boys in the hall way. One of them was from one of the classes I spoke to today. He said bye Jenna. I felt very comfortable today and I am going to talk to the grade eleven's on Thursday and Friday's. One girl even gave a hug and told me it was really nice meeting me.

As for my health goese, I didn't have a good day at all. I was very teary eyed today, and the pain in my jaw was very severe, and still is. I didn't eat much at all today. The bone seems to have gotten worse and my jaw movement is very limited. My medication never worked at all today. I had a headache today and sharp pains in my head. The bone in my jaw is deffinatly collapsed for sure. Plus the headache I had was a very bad headache.

My bladder condition was acting up and bothering me today. I had to go to the bathroom every fifteen minutes all day. I did take my medication for the bladder condition, but it didn't seem to work as well today. It really hurts today as well. I have a very stomache ache and I have had it all day today. It was extremly painful, and I also had majour nausea today as well.

My Carpal Tunnel Syndrome has been really acting up this week. I haven't been able to sleep for the past week because the pain in my jaw was severe, but also my Carpal Tunnel Syndrome has really been painful. Ice seems to help my hands a little bit. My hands get very swallen and numb as well. The pain even goese up to my whole arm, including my elbow.
I have a day off tommorrow, so that will be nice. I have a hockey game at night. The Blazers are playing the Calgary Hitman, and I hope we try really hard and ty it, or win it.
That's all for tonight, and I will write more tommorrow.

Monday, February 16, 2004 0:26 AM CST

Today was a very long and busy day for me. I went an spoke at ST.Anne's Acadamy, to the grade tens. The first class, I very much enjoyed because they all seemed really interested in my speech, and a lot of them asked lots of questions, and there were even hockeyfans in the room, which I thought was very very cool. They were the only class that asked about my website too, so I wrote it down on the board for them. I left that class with a pretty good feeling. Then I went to the second class, They asked some questions, and I could tell that it was inspiring to them. I then went to the last class. One girl told me after that, it was a really inspiriation and that she really enjoyed it. No one asked any questions in that class. I thought that today speaking to the grade tens went pretty well, and I enjoyed it. Then

I felt pretty good today, even though my jaw decided that it would lock up, in the middle of talking to the first class. I didn't eat anything much for lunch, and I got to hang out in the staff room in between classes. I was in a lot of pain though, and I felt some Nausea. I didn't sleep well at all lastnight as my Carpal Tunnel Syndrome decided to act up, and my hands went numb, and were extremly painful. I also went without pain killers most of the day, and I must say I am in a lot of apin now.
Well I have to go to bed because I have to get up early in the morning as I have to do my first speech at the school to the grade 12's at 8:20 or so. That's all for now and I will write more tommorrow.

Sunday, February 15, 2004 11:27 PM CST

On Saturday, I babysat a little boy, named Travis, his mom is my hair dresser. His mom dropped him off at my house for an hour while she went shopping. Later when she came to pick him up, he asked her if he could come back tommorrow. So I guese that means I did a pretty good job at looking after him. Then there was a Blazers game at night. We played against Prince George and we lost.

The Variety Club Telethone for BC's kids was on lastnight and it continued today. My bestfriend Jeneece who is ten was on it. She has a disease called NF. She is a real trooper and such a bundle of joy. I really enjoyed watching it this weekend. All I did today, which is Sunday, was sit infront of the tv. and watched it. I enjoy watching it, because I can relate to most of the kids, who are on it. Most of them are sick, and are in pain just like I am. The Varity Club helps make Children's dreams come true, just like Jared made mine come true.

As for my health, my jaw has become very pain full. As my bone in my jaw has collapsed an it makes it harder to move my jaw. There is also a lot more pain, because the bone keeps jabbing in my cheek. My mom dad are worried because they aren't sure that I will make it in time. The operation is not in March. We will be going to NC in March just to have tests done and then they will determine when it will be done. So I will be waiting a lot longer for the operation. My Carpal Tunel has been bothering me a lot lately. My hands are painful, and get very numb. They especially become really swallen as well.

Well Tommorrow is when I go and talk in the schools about bullying, inclusion and tell them about my story. I am a bit nervous talking to high school students, but I will be fine.
That's all for now, I will write more tommorrow.
Jenna

Friday, February 13, 2004 1:43 CST

Wow! what a day I had! It wasn't a very good one either. The only good part was that I had lots of fun at pre-school. We had another Valentines Party and the kids just loved it! Kio, my little buddy kept comming to me and kept telling me he missed me. I asked him if he wanted a hug and he gave me. Then when the twins mom came to pick them up, one of them came running to me and gave me a big hug and said bye. The other one came running to me after, asking me to zip up his coat. Mean while his brother, pointed at me, then told his mom, She's our friend.
Then a little boy Kyle, who is usually not very open, came running to me and gave me a hug.
That was the only good part of my day,

Later when I got home, I wanted to use the computer, but when I turned it on, it wouldn't boot up, it just froze. So I was very disapointed with that, plus Im not feeling well at all and the computer usually helps take my mind off things. So my dad got my lap top working for me, so I will be using it untill we can figure out what is wrong with my big computer.

Here is the very frustrating and painful part of my day. My bone decided to collapse, and move out of the joint. So now it is very hard to move my jaw. It is extremly still, and it is also painfull because I can feel it jabbing into my cheek. The sad part about this in a way, is that I have to wait untill March 17. I am trying all I can to put up with it, and hang in there untill we got to NC, but It is a tough one. My mom wanted to take me into the hospital here to see if it has collapsed, but then I said the only way they will find out is only if they do an operation. Now this is pretty serious that it has collapsed and I just have to keep Fighting and try to hang in ther untill we go. I am not feeling well at all and I am also very very pale. I am still trying to smile as much as I can, but i am not my spunky, bubbly self like I wasm and I don't like the fact that I am not bubbly, spunky and cheery self. I hope that someday I can be that again.
Please sign my guestbook because it always helps in times like this to read encouragement in it. The three things that always cheer me up is friends and family who support me, Others who care and write encouragments in my guestbook, and I love getting mail and that always puts a smile on my face.
Goodnight and will write again tomorrow.

Thursday February 12, 2004 11:13 PM CST

Today, Was an ok day. I was very teary eyed today which is caused by my medication. I take two Fentanyl pain patches and they last for three day. I Take eight Gabapentan a day, and they may make the dosage even higher. They help a little bit but because the pain has worse they don't help alot. I may not use my patches soon, and go on Methadone instead of course all pain medication have alot of the same effects to them. I don't have much of an appetite anymore and plus it hurts to eat because of my jaw. The patches can cause the loss of appeteite. I am also very moody and teary lately, and of course the meds and pain cause a lot of Nausea. I had another majour headache, plus lots of heavy pain in my jaw. I have had severe headaches for the last three days now. I am also very very pale, and I have been having problems swallowing lately. It is very frustrating at times, being this sick and not having any energy to do alot of stuff, because my meds make me very tired as well. But no matter how hard this is, I know I am going to make it through, because I always do and always will! I am a Fighter and a Warrior and I can do it!
That's all for now.

Thursday, February 12, 2004 10:50 PM CST

Today I had an ok day at pre-school. They had a Valentines Party there for the kids. Kids had a lot of fun and they enjoyed themselves. I was teary eyed there but I had fun with the kids. I get teary because that is one of the things my medication doese. It makes me teary eyed, and moody at times. Also My meds take alot of energy out of me and makes me Naussia. Of course most of them are pain medication that I take, so they all make me feel awful most of the time. Of course, hockey always cheers me up! Today for the third day in a row, I had another awful headache, and pain in my jaw. I don't have much of an appetite still. My mom was reading the box that my pain patches it can cause loss of appeteite, and nausia, and I have both of those. The pain medication that I am currently taking right now are Fentanyl pain pathes, Gabapentin,Tyonel three with codene, and Oxycodene. I only take the Tyonel Three and Oxycodene when I have ran out of the others, or sometimes I take them on my really bad days instead of the Gabapentin. I take two Fentanyl patches a time, and they last three days. I take eight Gabapentin a day for the pain. I may change the patches to Methadone, because the patches are not really working, and they may put me on a higher dosage of Gabapentin. Even though I am taking eight right now, my pain has worsen so I need a higher dossage. Then on top of that I am taking two different medication for my new condition that I just got diagnosed with. It gets frustrating taking all of this medication and having all of this pain still.
That's all for tonight.

Thursday, February 12, 2004 10:50 PM CST

Today I had an ok day at pre-school. They had a Valentines Party there for the kids. Kids had a lot of fun and they enjoyed themselves. I was teary eyed there but I had fun with the kids. I get teary because that is one of the things my medication doese. It makes me teary eyed, and moody at times. Also My meds take alot of energy out of me and makes me Naussia. Of course most of them are pain medication that I take, so they all make me feel awful most of the time. Of course, hockey always cheers me up! Today for the third day in a row, I had another awful headache, and pain in my jaw. I don't have much of an appetite still. My mom was reading the box that my pain patches it can cause loss of appeteite, and nausia, and I have both of those. The pain medication that I am currently taking right now are Fentanyl pain pathes, Gabapentin,Tyonel three with codene, and Oxycodene. I only take the Tyonel Three and Oxycodene when I have ran out of the others, or sometimes I take them on my really bad days instead of the Gabapentin. I take two Fentanyl patches a time, and they last three days. I take eight Gabapentin a day for the pain. I may change the patches to Methadone, because the patches are not really working, and they may put me on a higher dosage of Gabapentin. Even though I am taking eight right now, my pain has worsen so I need a higher dossage. Then on top of that I am taking two different medication for my new condition that I just got diagnosed with. It gets frustrating taking all of this medication and having all of this pain still.
That's all for tonight.

Wednesday, February 11, 2004 11:55 PM CST

Today was another rough day, because of my pain level, and I had stomache sickness pretty bad today too. Yesterday, I got another autographed Mario Lemuix picutre in the mail, the same one as I got last week. I decided I didn't need two of them, so I gave it to a friend who has done a lot of work on my computer, and he has also helped me when I had problems. He is nineteen and he is a really nice and polite kid. He wouldn't take any money from us, when we tryed to pay him, so I asked my dad if I could give him the other picture, and he said that he would love it. When he saw my picture that I had in my room, he said Wow, I would like to have that, youre lucky Jenna. So when my dad and I arrived at his house with it, you should have seen the look on his face. He even gave me a big hug! He also gave me NHL 2004, for my computer. I really wanted because Jared is in it.

I woke up again with another majour head ache. I felt really sick and I still feel sick. I am also very pale, and very weak as well. My stomache also hurts, and I haven't eaten much today. My jaw bone and my cheek are really hurting too. I am getting really frustrated with my pain, because it has gotten so bad, and I just wish I could have at least one or two days, without any pain. I just need a break from the pain, for a day or so, and I wish that would happen. Unfortanatly untill my jaw is fixed the pain is still going to be there. I am also still very sweaty and hot again.

Tonight was a Blazers game, here at home. We played the Tri-city Americans, and we won! 5 to 3, and my buddy Luky, just shined tonight! He scored two goals, and got one assist. He got his 15th, and 16th goal tonight, and he got 2nd player of the night award.
Well that's all for tonight, I will write again tommorrow.

Tuesday, February 10, 2004 10:10 PM CST

Today was a pretty tough day, health wise. I went to Pre-school today, and I enjoyed being out with the kids. The kids played for awhile inside. Then we took them out to the Y, which is next door, and they had fun in the gym. We used the parachute and played lots of games with it. Then they played with the balls and the scooters. Then we went back to the pre-school and had snack, and then it was time for the kids to go home.

Then I went to the Y with my life skills worker and we just sat and talked. I practiced my speech with her. Then When I got home, I just layed on my bed, and watched tv. I watched the Kings game tonight with my dad, and the kings won. My great Uncle John, past away a couple days ago, please keep my great and Lois and family in your prayers.

Health wise, My head and jaw is in severe pain and it feels like someone is punching me in the jaw. It hurts so bad, and my mom even put on a third pain patch, and all it did was make me sleepy. None of these pain medaction is working anymore, so we are going to see about changing my medication to Methadone, to see if that will work, and help the pain. So far the boutox hasn't helped alot. The pain at this point is so bad, that I can't even function right now. I have also been sweating all the time, and feeling very hot, and we aren't sure why or what might be causing it. Anyways that is all for now. I will write again tomorrow.

Monday, February 9, 2004 10:18 PM CST

Today, I stayed home and I did some more Valentine cards. I unloaded the dishes from the dish washer and I did the laundry. I watched the AHL All Star game tonight, and Canada won! Jared was in the AHL All Star game last year for the Monarchs. He used to play for the Manchester Monarchs but he doesn't anymore.

I got asked to talk to a bunch of classes next week at a local Catolic School. When I was in high school I got physically bullied, and verbally bullied. Guys who were around six feet would kick me, hit me, push me and threaten me, and also prank called us at home. I want to reach out to other kids, and talk about my story. The Catholic school I will be teaching at, can be a bad school for bullying. I am going to talk about my story and about including others. I want to get the message out that bullying of any kind is wrong. On Monday I have four grade ten classes to talk to. On Tueday I have three classes in grade 12 ot talk to. On Thursday i will be talking to two grade eleven classes, and on Friday I will be talking to one grade eleven class. I am a little nervous cause I have never talked to this many group of kids, and I have never talked to high school kids on this topic before. I am also very excited because I have always wanted to this, and now is my chance to.

As for my health, I have a lot of pain in my cheeks. My head has been spinning alot and my jaw bone is very painful. Again I have been refusing to eat because it is painful, only my parents keep encouraging me to eat at least a little bit so I do. My carpal tunnel is acting up al lot lately.
That's all for tonight, I will write more tommorrow.
Jenna

Sunday, February 8, 2004 10:01 PM CST

Today I stayed home and I watched the NHL All Star game. I was cheering for the West of course, because all my favourite players are on the west. I was so happy that Joe Sakic got the MVP award. I also listened to the Blazers game tonight. They played against the Kootney ice, and they lost three to nothing. I also made some more Valentines today. My jaw has been hurting wrose today then yesterday. I am still not wanting to eat anything, and I am not hungry. My parents keep trying to get me to eat something, and I eat a little bit but not as much as they would like me to eat. My jaw is really painfull and that's why I don't want to eat anything.
That's all for tonight, and I will write more tommorrow.

Monday, February 7, 2004 0:49 AM CST

Today was a good day. I went and babysat for a four yearold who is also my friend. We had Ichyband for lunch. We watched Aladan and the King Of theives, and we plad a few board games. We also played with her barbies as well. I never came home untill about five thirty.

When I came home I ate super in the living room with my dad. We watched the NHL All Star Skill competiotion. I listened to the Blazers game on the radio, and we won against the Red Deer Rebels two to one in overtime. That is the Blazers third game they have one in a row! Yahoo!

My pain level was in the middle today. I have had trouble going ot bathroom again today. My pain in my head has bothered me today. My cheek has been pretty sore as well.
That's all for tonight, I will write again tommorrow.

Saturday, February 7, 2004 0:52 AM CST

Today was a good day, but my pain level was pretty high. I had and still have a lot of pain in my lower cheeck and jaw now. I still have the head pains, but not as bad. Maybe that is a sign that the boutox is helping my head pains. I had and still have majour pain and majour burning in my jaw, for about five hours now. My neck is also numb and my mom thinks it is from my botox. I am having bathroom troubles again today.

I helped out around the house today, because my mom was at work, and my dad was busy. So I helped out so they wouldn't have to do it when they got home. I unloaded the dishwasher and put the dishes away. I also did all the laundry and I put all the clothes away. Then I made some of my valentines cards. I watched tv untill the Blazers game was on the radio.

The Blazers played the Calgary Hitman tonight, in Calgary. They were down two to 1, untill this guy Ray Macias scored, then Ray Macias scored another one in the second and it was two two. Then the Hitman scored to bring it up to three two. Then my buddy Luky scored and it was tyed three to three. Luky scored again in over time and it was then four to three! Luky's second goal was a short handed goal. Luky got the first player of the night award,and his fourteenth goal of the season. Ray Macias got the second award, and a Calgary hitman player got the third award. That sure made me happy and it also made me Smile. The blazers won their second game in a row and we need both wins.
That's all for tonight, I will write again tommorrow.
Good Night.

Thursday, February 5, 2004 1:01 AM CST

Today was a Test day at the hospital. This moring I went to the hospital to get Zaped and Poked. I got a Carpal Tunnel test done. My carpal Tunnel in my right hand is still mild, my left hand however has worsen. My doctor said that after my teeth and jaw are look after, and operated on, then she will operate on my carpal tunnel, because it is serious enough to operate on it.
I had my boutox done today. They did it right in the jaw mussels and bones. It hurt like crazy and still doese. Hopefully it will help with my painful headaches. It takes up to eight days to work.

A kid that I knew past away the other day. I wasn't friends with him, I just talked to him at the hockey games sometimes. When he saw me in the paper, when I went to LA, he asked me how my trip was. He seemed like a nice kid, who cared about others. Mike, his friend Josh that was also killed, and three other friends, were standing at a cross walk, waiting for the lights to change. An eighty five year old man, went through the red light, just as the boys were crossing. He hit Mike,his friend Josh, and another boy. The other two boys werent hit. Mike and Josh passed away by the time they got to the hospital, and the other boy got a bruised ankle. Even though I never really knew Mike, I just talked to him, it upsets me cause he was a nice kid and it saddens me that something like this has to happen to someone as nice as him. Mike was 17 and Josh was 16.
Well that's all I have to say for tonight.

Wed, February 4, 2004 0:51 AM CST

Today, was an ok day, seeing as I slept untill one in the afternoon, the day went pretty fast. I wasn't feelin good for most of part of the day. I have this awful sharp pains in my head. I spent little time on the computer, and more time on my bed, and that doesen't happen very often. Nothing to exciting happend today. There is no hockey games to go to untill next week. Plus there was no hockey game to watch on tv. Well there was hockey, but not my favourite teams. I have a Botox injection tomorrow, and a Carpel Tunnel test to see if it shows up that I have carpal Tunnel Syndrome. My hands and fingers are all painful and numb. Well thats' all for now. I will write tommorrow with an update, on how my tets went.
Jenna

Tueseday, February 3, 2004 0:49 AM CST

Well Today was another not so good day, when it comes to the pain, and trying to deal with it. I didn't sleep well again lastnight at all. I couldn't go to the bathroom at all and it is very un comfortable when that happens. I am in so much pain right now, and it is so severe. I have had tears in my eyes all day yesterday and part of today, because that is how bad the pain is. I didn't even want to eat supper, but my parents told me I had to eat something even if it was a little bit. I had a little snack at pre-school, and a Peanut Butter Sandwhich when I came home from pre-school. I had and I still have very very sharp pains in the head. I have also been sick to my stomache all day today.

It was nice to be back at pre-school and to see all the kids again. I was away on Thursday of last week, So I was glad to be back today. Little Kato, was away at home, sick all last week, and he drew me a picture. Kato is only four and his printing for a four year old is awesome! The kids painted snow today, and they all had a great time. I dozed off at pre-school today too. I wear two Fentinille pain patches for the pain, and they make me very tired, and drozy.
Tonight my dad and I went to a Blazers game. The Blazers played at home, and they won four to nothing. They played against Kootney Ice, and it was a Shutout, Yahoo!!!!!! My buddy even got one assist.
Well That's all for tonight, and I will update tommorrow.

Monday, February 2, 2004 11:48 PM CST

Lastnight, I kept getting up every hour to go to the bathroom, which I had great difficulty with. I also had stabbing sharp pains in my stomach that carried on all day to day. I felt sick to my stomach all last night and it also carried on all day today. I was very teary eyed today and tonight. I also had burning pains in my head, jaw, and stomach. I had a lot of difficulty with going to the bathroom, so there was and still is a lot of frustration that goese with that. I wasn't able to go for a whole hour, and finally I was able to go.

Despite having a rough day, I also helped my mom out around the house. I un loaded the dishwasher, and I did all the laundry. I had a shower, made my lunch, got my pj's on early, and put clothes out on the floor that I am going to wear tommorrow, all before my mom got home.

Two years ago I wrote Mario Lemieux, who plays for the Pittsburgh Penguins and is part owner of it. I wrote him a letter telling him, that he was one of my hero's because he fought cancer and survived it, so on. Then two weeks later after I sent it, I received a letter back, from the Pittsburgh Penguins. I was so excited, because I thought it was something from Mario Lemieux. Instead of hearing from Mario Lemieux, the letter was from the head office, thanking me for a ressume, but they were not hiring at that time. Even though I was disapointed because it wasn't from Mario Lemieux, I laughed, because I thought it was pretty funny. I mean, here I write an email to one of my favourite hockey players, and without even giving it to Mario, they just assumed it was a resume. Also on the Envelope it had Attention: To Mario Lemuiex only. My dad sure got a bang out of that, and he still doese to this day.

This morning my dad went and checked the mail, and there was something for me, from the Pittsburgh Penguins. My dad opened up the envelope, and it was a picture of Mario Lemieux in his Pittsburgh Penguin gear. To my dad
s surprise, and mine, it was personally signed. My dad and I were trying to think how they would have gotten my address from. We didn't think it was from the letter, as I sent it two years ago.

Jared called us today to tell us some great news. Jared had been at his friends company, to sign autographs and so on, for a charity fundraiser for me. The company makes video games and so on, it is simular to EA Sports. He got a phone call lastnight, saying that they are going to give us six thousand dollars for our trip to NC. I told Jared that I got a picture in the mail, signed by Mario Lemieux. Right away, "Jared said, oh I know who did that!"
I asked him who did, and he said that Nick did. Nick is Jared's Assistant Agent, and Nick also handles Mario Lemieux.

I would to say A very special Thank-You, to a good friend of mine, and my dad's. Nick James is a buisness agent, and he is also handles Mario Lemieux.
Nick, It was very nice of you to arrange for Mario Lemieux to sign and send me a picture of him. Mario Lemieux, is one of my many hero's in life, and I was very excited when I got the picture in the mail. I will always cherish the picture, and I will keep it forever. When I saw the picutre, I had a big, and huge Smile on my face!
Thank You very much Nick.
Your Friend Jenna.

Well that is all for tonight, as it is getting really late. I have to volenteer tommorrow at pre-school, and I have to get up early. So I have to go to bed early, so I can get up on time, and I hopefully I feel up to going. I miss going to pre-school, and I also miss the kids, when I am not feeling up to going, or when I can't make it because of an appointment or something.
That's all for tonight, and I will write again tommorrow.
Jenna

Saturday, Janruary 31, 2004 1:22 AM CST

Today, My mom and I went to Super Store. They had a huge sale on clothes which we bought. I got Cat and the Pj's, ScoobyDoo Pj's and Spounge Bob Pj's. I also got some more hoody's because i love hoodys' and I got a couple of sweat out fits. Then we came home and didn't have supper until late.

Here is an update on my health. I am still experinecing lots of pain, so my mom put two pain patches on me. I am now feeling very sick to my stomache. I am having problems with my bladder condition. It is really painful and burns when I go. I am still managing to smile and keep on Fighting. That's all for now.

I have gery good friend who my dad and I met on one of our many hospital trips to Vancouver. His wifes name is Chrisse, and his name is Anthony, and they are both hollywood actors from teenagers and have stared in various movies. Anthony is now a director and is in the process of directing his own movie. But and illness has over come him, at this time and he is struggling with his health and that is why he is a great inspiration to me. His attitude is very strong and like me he is not about to give up. He tells me that I am an inspiration to him. But because he is such a giving person, he and his wife, are just as much an inspiration to me. They will always be in my thoughts as much as me and my parents will be in theirs.

On be half of my Uncle Ken, who is experencing some tough health concerns at this time. I would like to encourage him and my auntie Donna, the same strength and inspiration that you have always given me and my parents. The words of wisdom that you have given me, that god will always be there for you, and give you the strength to overcome what he has put in front of you will also aply to you. Always keep a positive attitude and don't ever give up. Keep the faith and godbless.
Love you're neice Jenna, and my mom and dad.

Friday, January 30, 2004 0:11 AM CST

I was in a tons of pain and had lots of preasure in my head. I didn't do much today and I also felt very sick. I listened to the Blazers game tonight and they lost five to one. Hopefully they will win tommorrow night. Thats all for now.

Friday, January 30, 2004 0:11 AM CST

Well Today was a little better. I am getting used to the fact that I can't have the stuff I loved the most. I will always have this new condtion, but I just have keep fighting it. I had to fight alot with the preasure in my head today. My mom is going to put on two new pain patches tonight, so I will probably be sick to my stomache more often, Yuck! I watched the Kings game tonight and they tied the with the Avs! One of my favourite players, hero, Derek Armstrong even scored a goal! Yahoo!!!!! There is a big snow storm here! It keeps snowing and snowing, and snowing!!!!!!! My buddy Luky emailed me today before he had to go out on a road trip cause they are playing Tri-City on Friday night! He said that if I smile for him, he will score for me! That put a big smile on my face! I am staying home from volenteering at the pre-school tommorrow, because of the wheather, and because I am still not feeling up to it yet.
That's all for now.

Friday, January 30, 2004 0:11 AM CST

Well Today was a little better. I am getting used to the fact that I can't have the stuff I loved the most. I will always have this new condtion, but I just have keep fighting it. I had to fight alot with the preasure in my head today. My mom is going to put on two new pain patches tonight, so I will probably be sick to my stomache more often, Yuck! I watched the Kings game tonight and they tied the with the Avs! One of my favourite players, hero, Derek Armstrong even scored a goal! Yahoo!!!!! There is a big snow storm here! It keeps snowing and snowing, and snowing!!!!!!! My buddy Luky emailed me today before he had to go out on a road trip cause they are playing Tri-City on Friday night! He said that if I smile for him, he will score for me! That put a big smile on my face! I am staying home from volenteering at the pre-school tommorrow, because of the wheather, and because I am still not feeling up to it yet.
That's all for now.

Wednesday, January 28, 2004 10:52 PM CST

My surgery today went ok, seeing that I was awake for the whole thing, it wasn't that bad. It was quicker than I thought, and I was in tears, because it hurt. I am a trooper though, and I made it through. I do have a bladder condition called: Interstitial Cystitis. I now have to go on a diet for about three months, and take lots of more medication. I love potatoes, and I used to eat a lot of them but now I can't. I can't have any citrus fruits, Bananasm Tomatoes, Potatoes, and Caffine. This going to be a big change for me, but I will eventually get used to it.

Tuesday, January 27, 2004 11:55 PM CST

Today was an good day. I had a good day at prea-school, and when I came home, I spent all day on the computer. My operation on my bladder is tommorrow (Wed. Jan. 28th. I am a little scared but I will do ok. I will be taking my special stuffed Animal, Stitch with me to the hospital. I got from Disney Land with some of Jared's money that he gave us. So take it with me to surgery's and to my hospital visit's and he helps me stay strong. Well I have to go to bed soon because my operation is at seven thirty in the morning. Bye for now.

Monday, January 26, 2004 0:26 AM CST

Today I felt awful, and not smiley self. I am still very positive though and that will never change, no matter how awful I am feeling. From the time I got up, I felt sick to my stomache. I got sick a lot today, and my pain is pretty bad. I had a lot of preasure on my head. Even though I felt pretty bad, I still managed to do the laundry and the dishes. I did my floride on my teeth, which I hate doing. I made my lunch, had a shower and got ready for prea-school tommorrow, before my mom got home from work. I fell down the stairs tonight, so I am pretty sore. I went downstairs to tell my dad that my buddy scored a goal, and all of a sudden I lost my balance, and my mom and dad ran out of the rooms they were in to see who made a big racket. I think I just pulled a mussel, nothing to serious, but i have to be more careful on the stairs. I got a package in the mail from a friend. i got a Scooby Doo Radio, because I love Scooby Doo, I got hockey stuff and more neat stuff.
Well I have to go to bed early tonight because I am not feeling well at all so I have to sign off now.
That's all for now.

Sunday, January 25, 2004 11:36 PM CST

I can finally update my website! Our Telus internet server was down since late Thursday night. Friday I went to prea-school, and my little buddy Keo was there. He came and got me to play with him for a whole half hour! After pre-school I went bowling with Dan, who is my life skills worker. We then went to the SPCA and for coffee at Dairy Queen. My dad and I had a hockey game to go to on Friday night and we lost, but my buddy Luky scored. Jarret Lukin is my buddy's name, but Luky is his nickname.

On Saturday I wasn't feeling very well at all, but I wanted to go to Chapters. Then after Chapters, I came home and just layed down on my bed. I still wanted to go to the Blazer game because it was Luky's birthday.
I am glad I went because they won four to one! I would like to share a neat experience that happened to me at the game. I was just walking around the areana during the second period, and all of a sudden a lady called my name. I turned around and looked, and she said hi Jenna, I am Jarret Lukin's mom. We talked for a few minutes, then I asked her how she knew my name. She said, she told Jarret that she saw a little girl wearing a jersey with Luky on the back. He said, that's probably Jenna, if you see her, go get her, and say hi to her. I was so happy to hear that, and it made my night. I was sick to my stomach and not feeling well at all.

Today, I spent most of the day in bed. I am in so much pain and there is so much preasure on my head. My mom woke me up at two in the after noon. Then my mom came in my room and watched tv with me. I stayed in bed untill five. My mom and dad are very concerned, because they said that I am getting worse. I am still having the nausia feeling today. My dad and I watched the Canucks game tonight, and they one four to one. Well that's all for tonight.

Thursday January 23, 2004 10:30 PM

Today I had a great day at school, even though I wasn't feeling well at all. I felt sick to my stomach all day, and felt rotten, but I still wanted to be with the kids. If it was the flu I probably would have stayed home, but since it was just the pain and the meds, I went. There is this girl Celia, who won't say a word to anyone, and I am gradually getting her to open up, and helping include her with the other children. I am seeing some improvment, and I am very happy and proud of myself. Then there is my little buddy Kato who is a great lil guy and very smart and eager to learn. Then there is Brett who is a very cute lil guy as well, and loves taking art work home for his big sister, because she brings art work for him, from her school. I thought that was so sweet!!!!!!!!

I still felt very sick to my stomach tonight, but my friends invited me out for super, so I went even though I felt awful. THere was a lot of pain and presure on my head. I am sure a trooper though, and it helps to know that I am a hero to many people out there, especially to Jared, and other people in LA. It makes me feel so good, that Jared will do anything for me, and on my bad days, I always remember what he tells me and that just keeps me going. Plus My courage and determination helps keep me going, because I want to get well, which I know that one day, I will over comes this disease. That's all for now.

Wednesday, January 21, 2004 6:41 PM CST

Today was a quiet day. Our friends son came over to do some work on my computer, and tommorrow he is putting windows xp in. I was feeling sick to my stomache a lot today. The pain level is pretty bad. I will be watching the Canucks and Tampa game tonight. Tommorrow is preaschool. I don't have much to say tonight other than I had the stomach sickness thing again today. I think I will be having it often untill they operate on my jaw. Next week I have day surgery on my blatter. I have been having lots of problems with anethstetic, so the anethiest is very concerned about putting me asleep. They might do spinal tab in my spine. I am not looking forward to that or to be put under anestetic, but Im a Fighter, so I will make it through just fine.
Jenna

Tuese January 21, 2004 2:01 AM CST

This is going to be short because i need to go bed. Today was one of my good days. The pain was bad and something else is bugging me, but it was still a good day. I had fun at prea-school and I helped out a little girl, who is very shy and quite, and it is hard for her to mingle with the other kids.

Tonight I watched the Kings game with my dad. Two of the players that I met each scored a goal, one of them scored two. Derek Armstrong scored tonight, and he is one awesome guy! Ian Lapperierlle scored two goals, and then Joe Corvo scored 1. They beat the Flames 4 to 1! I am gonna go to bed with a smile on my face.

I am having problems going to the bathroom. Sometimes I can go and sometimes I can't. My mom said that the doctor said that if I can't go at all, I need a cath put in. Yuck I do not one in, so I am going to try my best to fight this. I am going to also try very hard to wait untill the 28, for surgery. I must admit though it is an awful feeling to have. My stomache and side are really sore and I am having difficulties breathing.
Thats all for tonight.
Jenna

Sunday, January 18, 2004 0:48 AM CST

It has been a very busy and very bad weekend, as far as my health, and pain goese. Friday night, I didn't fall asleep untill 5 in the morning, because of the pain. Saturday night I went and stayed over night at my restspite family's house. I had a lot of fun even though I was not well at all. Tina and Clayton our husband and wife, and they have a daugther named Courtany, a son named Bryce, and another son named Mac. I helped Tina make Morning Glory Muffins, and they are so good! They had company over, and we had pizza for super. I watched the Kamloops Blazers game and they lost against Kellowna Rockets 4 to 1. Then we all watched the movie Swat. Courtney is 15, Bryce is 12, and Mac is nine. I played X Box with the boys, and Mac and I played with our gameboy advance.

Today Clayton, Courtany, and I got to miss church and sleep in. I enjoy going to church, but I wasn't feeling well yesterday. So I decided to stay home today, and sleep in. I slept in untill eleven o clock. Tina and Clayton had friends come over for lunch. They own a christian book store called Soul Sorce here in Kamloops. They have three boys, and they are all close to the Mac, and Bryce's age. Dallas and Chris (who are twins) just turned 13 years old, and Jossiah is 9 years old. We had a very very good lunch, and to everyone's surprise I ate all of the food that was on my plate. We had a baked potato with melted cheese, corn, carrots, potato salad, and Lausgna. Well I had Lausnga, because I couldn't eat steak. Tina cut up a little peice of steak for me to suck on. Then I hade two derserts as well. My mom came to pick me up at 4 o clock.

Tonight, my friends Anthony and Chrisse called me. To my surprise I found out that they both are famous, hee hee. Anthony is an actor, and Chrisse, was an actress. Chrisse played in ER for six years, and one of the movies she played in is called The Rescue. Anthony played in lots of movies too. He played in, Dazed in Confused, Loved, Pump Up The Volume, and many more other movies. Anthony is also a director and his movie is going to be filmed in Scottland. It is going to be about clowns, and it is called The Clown. Anthony and Chrisse are awesome people!!!!!!! They are also people I look up to, and that I inspire. Anthony and Chrisse, live in LA, and they have lived there for 15 years. Anthony has severe health problems of his own. I met Anthony and Chrisse in Vancouver at Easter Seal House. Anthony was there to see a natural path who is the best in the world.

Tonight my dad and I went to a Blazers game. We lost again 4 to nothing, against the Protland Winter Hawks. I was not well at all at the game. I got sick to my stomache about five minutes after my dad and I, got to the arena. I was dertermined to stay and watch the game, and cheer Luky on! On our way to our car, after the game I got sick again. I got to see Digger at the game, and he came up to me and gave me a big hug. Then he came after to my section, and to my seat, because he wanted to say hello. I was not feeling well though and I was in the bathroom. So when I wasn't there, he asked one of our friends that sits in our section where I was. My dad came back to the seat and he told digger, that I am not feeling well at all. My jaw has been in a jaw lock all night, and my ears are plugged up.
Well it late so I will end this update for tonight.
Jenna

Friday, January 16, 2004 11:49 PM CST

Today was not a good day at all. I was out of it all day, due to my pain. My pain was so bad I was having difficulty at pre-school, but because I went there this morning I stayed the rest of the day. I don't like giving up. My life skills teacher came and picked me up there. Then from pre-school we went to Chapters book store to look around and then we went to Petecetra and looked around there. The went back to my house and before he left, he wanted to teach me how to play the card game golf. Then tonight my dad and I had a Kamloops Blazers game to go to. We won three to one, and my friend Luky got two assist of the night. The Blazers Mascott Digger, saw me at the game. Since he has seen me in the paper, he alaways makes a point of comming up to me and giving me a hug at every hockey game! My dad and I have season tickets for the Kamloops Blazers, in the WHL, (Western Hockey Leauge.) I had a very busy day today. I haven't been feeling the greatest lately and have been very sick. Hopefully after my operation Things will be different. I am going to North Carolina on March 17th, but I will be just having tests and stuff done, they want to make sure that I am a canadate for the operation. I am crossing my fingers that I am because it is my only hope. My hockey friends/ hero's, Jared, Jarret (Luky) and Derek, help me out a lot and everytime I am in pain I think about them, and what they would say. Also my support team in LA, a lot of them are the LA Kings, players, coaches, and management that I had a chance to meet. They all think that I am a Fighter, and they all believe in me, and I feel very special that I have so many people, especially a whole NHL Hockey Team, backing me up and supporting me.
That's all I have to say for tonight.

Thursday, January 15, 2004 0:06 AM CST

Today was a pretty good day at preschool. The kids made this pretty neat igloo thing with marshmellows for art. The kids sure kept me pretty busy today. Fifteen kids on Tuesedays and Thursdays classes. Today I read the kids a story, cuddled a little girl who was upset, and I cleaned up. There is definatly something blocking my jaw from oppening too much, because it is very painful. It even hurts to talk or open it. My head is extremly painfull as well. My medicdation is definatly not helping, and I felt sick to my stomach all day. I am also pretty tired today and I fell asleep before super which I normally wouldn't do if I was not on this medication. That's all for now.

Wed, January 14, 2004 0:10 AM CST

We made the appointment for North Carolina on March 17th. Jared called us today and he said that he thinks he can raise all the funds that we will need. The Kings have also said that they willl help with the charity as well. I am feeling very awful and pretty sick. The sharp pains comming from my head is unreal. I can't even lay my head on my pillow the pain is that bad. I am feeling very sick as well, and I am very pale. I have no appetite, and my meds make me so tired. I feel very dizzy and spinny. I am trying to stay as positive as I can.
That's all for tonight.

Tuesday, January 13, 2004 7:01 PM CST

Today was a rough day, I got up at six. Because we were out the door by seven thirty. We had to be at the hospistal by eight, because I had an appointment with the anthiest. We had to talk to the nurse first, then we saw the anthiest. He seemed really nice, and he is going to see if they can avoid put me to sleep for the operation. I get very very sick after anestetic and so he wants to see if he can avoid putting me asleep. My doctor though didn't want to do that, but that was before the anethiest looked at my past records. If they don't have to put me to sleep then they will just freeze where they are going to be operating on. I hate having a tube in my nose, because they put it in when I wasn't sedated and I gaged and it hurt. So instead they may do a spinal tap and do it through my spine/back. I am not in good spirits today because I am feeling very yucky, sick and lots of pain. I started to cry in the anethiest's office today, beacause there is just so much happening all at once and I wish that there could be an end of all the operations. When i started to cry, I could see my mom in tears. I don't like seeing my mom or dad cry, when I am this sick, but i know it is because they worry and it is because they care, love me, and they don't like seeing me like this. It seems like there is no end. I am really having a tough time with my meds, but I just keep fighting them, and I will never give up. I am having tons of sharp pains comming from the back of my head. I feel dizzy, spinny, and it feels like im not really here. (mind wise) I am also having lots of pain in my stomach, and I feel very teary eyed and not myself today. My whole head is filled with a sharp pain it seems. It is very painful to lay down. It even hurts when my mom and dad slightly touch it. I kept dozing on and off all day today, I can't understand why. My dad said that it could be because I am sick. I need some cheering up, because that I always helps when others help put a smile on my face. I am still trying to think positive, but I must admit that it is pretty hard to, when I am this sick. Well I guese I should go now, because it is really late here in BC.
That's all for today.
"Brave Warrior" (Jenna)

Monday, January 12, 2004 11:45 PM CST

We got a phone call today and BC Health has approved to pay for my medical to go down to North Carolina! So now we just need the money for the expences. We are hopping that it isn't too short notice for Jared to come up with money. Now we are trying to get a hold of the doctor in NC. to book an appointment. Even though I am a little scared, it is getting closer to my surgery. My jaw today was in a lot of pain, but I had one of my better days today.

Saturday, January 10, 2004 8:25 PM CST

Today I felt the same as I did yesterday. My head and Jaw seem to be really painful today. It feels like that there is something blocking my jaw moving around. I have been feeling weak and dizzy today. I ended up at the walk in clinic today, because I have been having a lot of difficulty with my bladder. I also have a lot of sharp pains comming from my stomach. I have a bladder infection, and I am now some more anitbiotics. Some white blood cells keep showing up. My mom and I went to Walmart today. I got lots of lego, because they were on sale. I love building with lego. I also got a Strawberry Short Cake puzzel. I am listening to the Blazers game on the radio right now, and I will be watching the Kings game soon, when it comes on.
That's all for now.

Friday, January 9, 2004 7:27 PM CST

Lastnight was a very very bad night. I went to be at tweleve, and couldn't go to sleep untill two. Then I woke up at three, and then woke at 7, because that is they time i get up when I have to volenteer at the Y prea-school. I had so much pain, and preasure on my brain, and that is why I had so much trouble. This morning I woke up, and it was no better. So my mom and I decided that I should stay home, and not go today. I had oatmeal, then took some gabapentin, and then my mom put a second pain patch on. I got sick to my stomache, and it doesen't seem to be helping me at all. I have so much pain on my sid eof my stomache, and my jaw. I am feeling very weak and the pain makes me feel awfull. My jaw feels like it is going to explode, and my head is hurting me too. I am still tryign to smile, and think positive. I didn't anything today except the laundry for my mom, unloaded the dishwasher, and layed on my bed and watch my tv, and Finding Nemo.
Well that's all the update for now.
Jenna

Wedensday, Janruary 7th 2004

Well today was a bit better day. I had a great day at prea-school, even though the pain is extremly difficult to handle, I am trying to stay as positive as I can. My jaw bone has moved and cracked last night, so things are pretty severe. I am not able to open it much anymore to eat. So my mom said that she may have to give me liquids. As for my medication, they may put me on Methadon, which I don't I want to take.

I have day surgery for my kidney's and blader comming up on Jan. 28th. My medication are shutting down my whole system, and my kidney's and blader are giving me a rough time. So the doctor just wants to check to make sure things are ok.

I got to talk to Jared today, and so I feel a bit better today. Jared is going to start the fundraising as soon as possible. He is going to talk to the Kings tommorow and he will give us a call back, letting us know about the fundraiser.

I am very Thankful to have the support of Jared, The LA Kings, including the players that I have met.
My friend Luky, who plays for the Kamloops Blazers, told me to smile for him, and he will score for me. So that helps me keeps going as well.

All I can do in the mean time is keep fighting and being the "Brave" Warrior, that I am. Everyday that I am still here is a good day! I just have to keep positive, keep Smiling, and everything will be ok.
That's all the update for now.

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